#BCSM Transcript

Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.

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Elizabeth Viggiano @EV11PDX
Portland Lobmember ready and waiting.... #bcsm
Double Whammy @double_whammied
@EV11PDX Glad you can join us, Elizabeth! #BCSM
Double Whammy @double_whammied
RT @garyleethompson: Truly looking forward to some powerful new learning about @LobularBCA and this form of #breastcancer on tonight's #bcs
Double Whammy @double_whammied
RT @Adrianvlee: Ready for a #BCSM tweetchat on #lobular #breastcancer? Fingers shaking over keyboard? More here: https://t.co/0iW5xvkWNu… h…
Lobular Breast Cancer Alliance @LobularBCA
#bcsm The West coast is ready! @EV11PDX @hiplinemedia @lobular
Katherine OBrien @ihatebreastcanc
RT @LobularBCA: #bcsm The West coast is ready! @EV11PDX @hiplinemedia @lobular https://t.co/aa8Ke9uqsq
Katherine OBrien @ihatebreastcanc
RT @Adrianvlee: Lobmob Team ready for questions #BCSM #lobular https://t.co/7c0qaho8d6
Katherine OBrien @ihatebreastcanc
RT @oesterreichs: Join us for a discussion on ILC tonight 9pm EST. #bcsm https://t.co/FN0Te7wjOY
Katherine OBrien @ihatebreastcanc
RT @fredhutch: Monday 8/13 at 6p PT, join Hutch News' Diane Mapes (@double_whammied), researcher/#breastcancer onc Dr. Julie Gralow, @PittT
Daniel Stover, MD @StoverLab
Dan - med onc from Ohio joining in for as long as I can. Excited for #bcsm to feature #lobular tonight! #bcsm
nathalie @nemtipi
RT @DrAttai: #bcsm New groups forming in Sept - mindfulness meditation vs survivorship education for breast cancer survivors 50 or younger…
NCI Cancer Stats @NCICancerStats
Black women are more likely than women of other races/ethnicities to die from breast #cancer. Learn more about this disease here: https://t.co/OWYkgGZP9a #BCSM https://t.co/2TwMfZcJQJ
Steffi Oesterreich @oesterreichs
@StoverLab Great you can join us! #bcsm
Mighty Casey Quinlan @MightyCasey
Read this RIGHT TF NOW. And then hop on the #bcsm chat at 9pm ET. https://t.co/O4TADy8wlf HT @double_whammied
Dr. Susan Love @DrSusanLove
RT @tmprowell: Lumpectomy + RT for #DCIS assoc w/ better 15 yr #BreastCancer mortality than lump or MRM alone. Note that in absolute terms…
Adrian Lee @Adrianvlee
What are the key questions key to address in lobular cancer? Detection? Treatment? Prevention recurrence? #BCSM
Double Whammy @double_whammied
RT @MightyCasey: Read this RIGHT TF NOW. And then hop on the #bcsm chat at 9pm ET. https://t.co/O4TADy8wlf HT @double_whammied
Alicia C. Staley @stales
Alright, it's 9 pm ET. Good evening #BCSM crew!
Double Whammy @double_whammied
Woo hoo! #BCSM on #ILC is up and running
Jay Peterson @Jpete008
Hi all. Jane from Denver here. 5 years out ILC/IDC. Back for the lobmob. #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
Hi #bcsm and #lobmob! Becca from @LombardiCancer, #lobular breast cancer researcher
Alicia C. Staley @stales
@Jpete008 hi there! #bcsm
Alicia C. Staley @stales
@Prof_Riggins @LombardiCancer Welcome! Nice to see you! #bcsm
Dr. Deanna Attai @DrAttai
#bcsm good evening everyone, Deanna Attai, breast surgeon in LA
Alicia C. Staley @stales
@double_whammied Hello, hello! #bcsm
Alicia C. Staley @stales
@MightyCasey @double_whammied bingo! #bcsm
Double Whammy @double_whammied
So glad you could join us tonight, Dr. Attai! #BCSM
Julie Gralow @jrgralow
Hi Everyone. Julie Gralow here - breast med onc from Seattle #bcsm
Alicia C. Staley @stales
@oesterreichs @StoverLab Welcome! #bcsm
Alicia C. Staley @stales
@StoverLab Welcome! #bcsm
Howard Karpoff @doctorkarpoff
RT @stales: Alright, it's 9 pm ET. Good evening #BCSM crew!
Mighty Casey Quinlan @MightyCasey
Here for a bit. 9pm ET = not my finest hour, brain wise. I'm plant life. #BCSM
Mommy's Cancer @MommysCancer
RT @stales: Alright, it's 9 pm ET. Good evening #BCSM crew!
Dr. Deanna Attai @DrAttai
#bcsm - recommend putting the hashtag B4 tweet if tweet >140. Otherwise won't show up on platforms like https://t.co/XtlQJVHkF1
Lobular Research @LobularResearch
What biomarkers have been identified, if any, from the Pitt Endocrine Response clinical trial (NCT02206984)? #bcsm #lobular #ILC #breastcancer
Gary L. Thompson @garyleethompson
Greetings #bcsm friends. Checking in as myself tonight and not @CLOUDHealth When discussing #breastcancer from personal perspective, not CLOUD work on new data paradigm, I want to be "me!" :-)
Alicia C. Staley @stales
Good evening! Please take a moment to say hello. We will get started shortly #bcsm
Alicia C. Staley @stales
@garyleethompson @CLOUDHealth hello! #bcsm
Matthew J. Sikora @mjsikora
Hello BCSM! Matt - scientist and lobular researcher from Colorado. Long time BCSM lurker. #bcsm
Rod Ritchie @malefitness
BCa 2014 and PCa 2016. NED for both. #bcsm
Dennis Keim @denniskeim
Howdy, #bcsm peeps. Stage 1 breast cancer dx in 2013. Still NED (No Evidence of Disease) in NE.
Alicia C. Staley @stales
@MightyCasey :-) Cheers! #bcsm
Mighty Casey Quinlan @MightyCasey
RT @LobularResearch: What biomarkers have been identified, if any, from the Pitt Endocrine Response clinical trial (NCT02206984)? #bcsm #lo
Alicia C. Staley @stales
@denniskeim hi Dennis! Great to see you. #bcsm
Alicia C. Staley @stales
@malefitness hello!! #bcsm
Steffi Oesterreich @oesterreichs
@Adrianvlee Understanding imaging is very important, also we need to understand differences in basic biology so we can personalize medicine #bcsm
Double Whammy @double_whammied
Diane Mapes here from Seattle, Dx'd with #lobular #breastcancer in Feb 2011. Trying to get the word out about this freaky sneaky subtype of #BC. #BCSM
Alicia C. Staley @stales
@mjsikora Wow, welcome! Thanks for joining in tonight. #bcsm
Katherine OBrien @ihatebreastcanc
@Adrianvlee #BCSM how about acknowledgement? was at patient seminar with Lobular Mets patients and they were told treatment is the same as for IDC. Not exactly a font of information! patients must push for answers because there isn’t a lot offered...for most
Alicia C. Staley @stales
@fckboobiecancer whoop whoop #bcsm
Lobular Breast Cancer Alliance @LobularBCA
Hello from the @lobularbca Lobular Breast Cancer Alliance! https://t.co/leLzt5mvu5 #lobmob #lobular #ILC #bcsm
Katherine OBrien @ihatebreastcanc
RT @LobularResearch: What biomarkers have been identified, if any, from the Pitt Endocrine Response clinical trial (NCT02206984)? #bcsm #lo
Julie Gralow @jrgralow
RT @double_whammied: Diane Mapes here from Seattle, Dx'd with #lobular #breastcancer in Feb 2011. Trying to get the word out about this fre…
Alicia C. Staley @stales
We will get started with the questions in a moment. #bcsm
ProprioStrength @ProprioStrength
Howdy, Cheryl from Seattle here. Working toward lobular advocacy. #bcsm
Dr. Kelly Shanahan @stage4kelly
Kelly, former ob/gyn and current MBC patient, checking in from mildly smoky Lake Tahoe. Tired tonight as I didn’t get much sleep because my baby was flying to Europe all by herself yesterday. Grateful that she kept me updated thru flights and trains #bcsm
Lobular Breast Cancer Alliance @LobularBCA
RT @oesterreichs: @Adrianvlee Understanding imaging is very important, also we need to understand differences in basic biology so we can pe…
Katherine OBrien @ihatebreastcanc
RT @jrgralow: Hi Everyone. Julie Gralow here - breast med onc from Seattle #bcsm
Katherine OBrien @ihatebreastcanc
RT @DrAttai: #bcsm good evening everyone, Deanna Attai, breast surgeon in LA
Alicia C. Staley @stales
As a reminder, you can learn more about the #BCSM community here: https://t.co/rUD9nLTZe4
Double Whammy @double_whammied
@stage4kelly So glad you could make it, Kelly! #BCSM #lobularbc
Katherine OBrien @ihatebreastcanc
RT @oesterreichs: @Adrianvlee Understanding imaging is very important, also we need to understand differences in basic biology so we can pe…
Katherine OBrien @ihatebreastcanc
RT @garyleethompson: Greetings #bcsm friends. Checking in as myself tonight and not @CLOUDHealth When discussing #breastcancer from persona…
Katherine OBrien @ihatebreastcanc
RT @double_whammied: Diane Mapes here from Seattle, Dx'd with #lobular #breastcancer in Feb 2011. Trying to get the word out about this fre…
Double Whammy @double_whammied
RT @stales: We will get started with the questions in a moment. #bcsm
Mia Spano-Curtiss & Sondra Price @BSBreastCancer
RT @stales: @fckboobiecancer whoop whoop #bcsm
Hillary Stires, PhD @HillStirSci
@stales Hi all!! I'm Hillary, a postdoc at @LombardiCancer studying endocrine resistance in #lobular, coming off of a great weekend celebrating my BFFs 30th birthday - her first since diagnosis that she's celebrated NED! #bcsm
Alicia C. Staley @stales
You can also learn more about the tweet chat here: https://t.co/0KzBtOpPgz #bcsm
Alicia C. Staley @stales
@HillStirSci @LombardiCancer hey there! Nice to see you! #bcsm
Dennis Keim @denniskeim
RT @stales: As a reminder, you can learn more about the #BCSM community here: https://t.co/rUD9nLTZe4
Gary L. Thompson @garyleethompson
@stage4kelly My sister and family from Charlotte, NC just spent the last few days there in South Lake Tahoe... they had to cancel time in Yosemite. Hope all stay safe out there!! #bcsm
Alicia C. Staley @stales
@stage4kelly hey! hugs! #bcsm
Alicia C. Staley @stales
@ProprioStrength Welcome! #bcsm
Double Whammy @double_whammied
@TalkIBC Awesome! GLad you could make it, Terry! #BCSM
Dr. Deanna Attai @DrAttai
#bcsm for those who didn't see it, @double_whammied wrote a nice post about invasive lobular breast cancer, topic for tonight https://t.co/prq4RTxm0P
Katherine OBrien @ihatebreastcanc
Hi #bcsm it’s Katherine living with Mets since 2009. not Lobular but as a patient advocate I want to learn and share
Dennis Keim @denniskeim
RT @oesterreichs: Join us for a discussion on ILC tonight 9pm EST. #bcsm https://t.co/FN0Te7wjOY
The IBC Network Foundation @TalkIBC
All cancer sucks but really sucks to have to explain it all the time, right? "You have what...? " #bcsm
Elizabeth Viggiano @EV11PDX
de novo stage 4 in 2015... #bcsm
Double Whammy @double_whammied
RT @ihatebreastcanc: @Adrianvlee #BCSM how about acknowledgement? was at patient seminar with Lobular Mets patients and they were told trea…
Alicia C. Staley @stales
Tonight, we are talking about lobular Breast Cancer - more on the #bcsm site: https://t.co/khmTAmywyF
Dr. Deanna Attai @DrAttai
#bcsm additional info on invasive lobular BC from @Breastcancerorg https://t.co/TTpyH4wcIo
Katherine OBrien @ihatebreastcanc
RT @DrAttai: #bcsm for those who didn't see it, @double_whammied wrote a nice post about invasive lobular breast cancer, topic for tonight…
Dr. Kelly Shanahan @stage4kelly
@garyleethompson The fires are over 100 miles away, but the smoke travels far. #bcsm
Katherine OBrien @ihatebreastcanc
RT @ProprioStrength: Howdy, Cheryl from Seattle here. Working toward lobular advocacy. #bcsm
Dennis Keim @denniskeim
RT @DrAttai: #bcsm for those who didn't see it, @double_whammied wrote a nice post about invasive lobular breast cancer, topic for tonight…
Julie Gralow @jrgralow
RT @DrAttai: #bcsm for those who didn't see it, @double_whammied wrote a nice post about invasive lobular breast cancer, topic for tonight…
Double Whammy @double_whammied
Thanks for the shoutout, @DrAttai. #BCSM
Alicia C. Staley @stales
Please welcome our special guests for tonight's chat: @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm
Dr. Deanna Attai @DrAttai
@stage4kelly @garyleethompson #bcsm I'm in LA and there was ash on the ground the other morning
Alicia C. Staley @stales
T1 is coming up! #bcsm
Alexis S @Lex_in_CO
Checking in from N Colorado. Patient dx Stage IV de novo 5 yrs ago #BCSM
Mighty Casey Quinlan @MightyCasey
RT @DrAttai: #bcsm additional info on invasive lobular BC from @Breastcancerorg https://t.co/TTpyH4wcIo
Alicia C. Staley @stales
@DrAttai @stage4kelly @garyleethompson WHAT! are you serious? that's awful #bcsm
❌SouthrnBeachGrl @SouthrnBeachGrl
RT @LobularBCA: Join lobular breast cancer patients and @LobularBCA on a #BCSM (breast cancer social media) tweetchat. Monday, Aug 13, at 9…
Neelima Denduluri @ndenduluri1
#bcsm Hi from northern VA
Double Whammy @double_whammied
RT @stales: Please welcome our special guests for tonight's chat: @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm
Dr. Deanna Attai @DrAttai
@stales @stage4kelly @garyleethompson #bcsm Cali fires this summer are no joke. So many lives lost or destroyed. Just devastating
Katherine OBrien @ihatebreastcanc
RT @stales: Please welcome our special guests for tonight's chat: @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm
Katherine OBrien @ihatebreastcanc
RT @Lex_in_CO: Checking in from N Colorado. Patient dx Stage IV de novo 5 yrs ago #BCSM
Steffi Oesterreich @oesterreichs
@ihatebreastcanc @Adrianvlee #bcsm We know that there are differences between metastasis in IDC and ILC, but don't know the underlying biology yet. We need more research on ILC to find specific information and targets
Dennis Keim @denniskeim
RT @DrAttai: #bcsm additional info on invasive lobular BC from @Breastcancerorg https://t.co/TTpyH4wcIo
Adrian Lee @Adrianvlee
Nice clinical review on ILC https://t.co/1M57BSLsnh #BCSM
Liza Bernstein @itsthebunk
Hi everyone! Joining late! #bcsm
Alicia C. Staley @stales
@ndenduluri1 Welcome! #bcsm
Leslie @Leslieks
Greetings #bcsm friends.
Dennis Keim @denniskeim
RT @double_whammied: Diane Mapes here from Seattle, Dx'd with #lobular #breastcancer in Feb 2011. Trying to get the word out about this fre…
Katherine OBrien @ihatebreastcanc
RT @oesterreichs: @ihatebreastcanc @Adrianvlee #bcsm We know that there are differences between metastasis in IDC and ILC, but don't know t…
Alicia C. Staley @stales
T1: @double_whammied @oesterreichs @LobularBCA @jrgralow -- What is Lobular Breast Cancer? What do we need to know? #bcsm
Alicia C. Staley @stales
@Leslieks Welcome! #bcsm
Hillary Stires, PhD @HillStirSci
@itsthebunk Hi Liza! #bcsm
Julie Gralow @jrgralow
Lots of lobular breast cancer patients on this chat! #bcsm
Julie Gralow @jrgralow
RT @jrgralow: And here's another link to an invasive lobular piece also written by @double_whammied for @fredhutch #bcsm https://t.co/vOFv1662DD https://t.co/cYfyjhh455
Liza Bernstein @itsthebunk
I am Liza - NED (still... fingers crossed!) from 3 primary dxs of breastcancer. Eager to learn all a bout #lobular breast cancer on tonight's #bcsm
IBC Research Fdn @IBCResearch
Hi...#IBCer Dx 1994, TN, also an RN. 24/7 advocacy work. Catching up after 2 1/2 wk away doing cancer related stuff #BCSM
mary smith @ggmanonie
RT @stales: @Leslieks Welcome! #bcsm
Dennis Keim @denniskeim
@itsthebunk Hey, Liza! :) #bcsm
Mighty Casey Quinlan @MightyCasey
RT @jrgralow: RT @jrgralow: And here's another link to an invasive lobular piece also written by @double_whammied for @fredhutch #bcsm htt…
Matthew J. Sikora @mjsikora
RT @Adrianvlee: Nice clinical review on ILC https://t.co/1M57BSLsnh #BCSM
Liza Bernstein @itsthebunk
@HillStirSci Hi Hillary! :-) #bcsm
april knowles @akknowles1
Hi all. Can’t stay long, gettingready for the first day of middle school 😮#bcsm
Alicia C. Staley @stales
@jrgralow Yes, happy to see some new faces that want to learn more. Thank you for participating tonight! #bcsm
Alicia C. Staley @stales
@akknowles1 good luck! #bcsm
Alicia C. Staley @stales
RT @Adrianvlee Nice clinical review on ILC https://t.co/HoarqSCtTb #BCSM
Steffi Oesterreich @oesterreichs
@stales @double_whammied @LobularBCA @jrgralow It is the second most common histologic subtype of breast cancer, representing 10-15% of all diagnosed breast cancers #BCSM
Alicia C. Staley @stales
@Lex_in_CO hope you are doing well! #bcsm
Double Whammy @double_whammied
T1: #ILC #lobular #BC often doesn't make a lump. I had a "dent" or "tuck" in my breast. NO LUMP! #BCSM
Liza Bernstein @itsthebunk
RT @DrAttai: #bcsm for those who didn't see it, @double_whammied wrote a nice post about invasive lobular breast cancer, topic for tonight…
The IBC Network Foundation @TalkIBC
RT @oesterreichs: @stales @double_whammied @LobularBCA @jrgralow It is the second most common histologic subtype of breast cancer, represen…
Alicia C. Staley @stales
RT @double_whammied T1: #ILC #lobular #BC often doesn't make a lump. I had a "dent" or "tuck" in my breast. NO LUMP! #BCSM
Liza Bernstein @itsthebunk
RT @jrgralow: Lots of lobular breast cancer patients on this chat! #bcsm
Liza Bernstein @itsthebunk
RT @stales: @jrgralow Yes, happy to see some new faces that want to learn more. Thank you for participating tonight! #bcsm
Dennis Keim @denniskeim
RT @stales: RT @double_whammied T1: #ILC #lobular #BC often doesn't make a lump. I had a "dent" or "tuck" in my breast. NO LUMP! #BCSM
Dr. Deanna Attai @DrAttai
@stales @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm T1 lobular BC accounts for ~15% of all invasive breast cancers; ductal ~80-85%. Lobular known as the "sneaky" BC - often not seen on mammogram, MRI or ultrasound even if more advanced
Matthew J. Sikora @mjsikora
RT @double_whammied: T1: #ILC #lobular #BC often doesn't make a lump. I had a "dent" or "tuck" in my breast. NO LUMP! #BCSM https://t.co/d6…
Julie Gralow @jrgralow
T1: Invasive lobular carcinoma comprises about 10-15% of breast cancers. Doesn't make a lump, so difficult to find on imaging and physical exam! Most patients report a thickening, or subtle difference between the two breasts. #bcsm
Katherine OBrien @ihatebreastcanc
Different metastatic sites? #bcsm
Liza Bernstein @itsthebunk
RT @oesterreichs: @stales @double_whammied @LobularBCA @jrgralow It is the second most common histologic subtype of breast cancer, represen…
Dr. Kelly Shanahan @stage4kelly
@DrAttai @garyleethompson Probably from the Holy fire, in orange county. My daughter lives in orange, although right now she’s across the pond in Austria #bcsm
Alicia C. Staley @stales
RT @jrgralow T1: Invasive lobular carcinoma comprises about 10-15% of breast cancers. Doesn't make a lump, difficult to find #bcsm
Dr. Susan Love @DrSusanLove
RT @jrgralow: T1: Invasive lobular carcinoma comprises about 10-15% of breast cancers. Doesn't make a lump, so difficult to find on imaging…
Liza Bernstein @itsthebunk
@denniskeim Hey Dennis!! :-) #bcsm
Julie Gralow @jrgralow
RT @double_whammied: T1: #ILC #lobular #BC often doesn't make a lump. I had a "dent" or "tuck" in my breast. NO LUMP! #BCSM https://t.co/d6…
Julie Gralow @jrgralow
RT @DrAttai: @stales @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm T1 lobular BC accounts for ~15% of all invasive breast canc…
Dr. Susan Love @DrSusanLove
RT @DrAttai: @stales @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm T1 lobular BC accounts for ~15% of all invasive breast canc…
Steffi Oesterreich @oesterreichs
@stales @double_whammied @LobularBCA @jrgralow #bcsm The main difference is that the cells lack e-cadherin, which glues cells together. As a result, the tumor cells grow in a spider-web like fashion and not as a lump
Dr. Deanna Attai @DrAttai
@stales @double_whammied #bcsm T1 "dent", "dimple" etc can also be seen with ductal cancer - so not a definitive feature of lobular - any change needs to be evaluated by your doc
Dennis Keim @denniskeim
RT @Adrianvlee: Nice clinical review on ILC https://t.co/1M57BSLsnh #BCSM
Lobular Breast Cancer Alliance @LobularBCA
T1: Lobular breast cancer is a different disease. But it's treated with the same protocols as #IDC #bcsm That is not good enough
Liza Bernstein @itsthebunk
RT @jrgralow: T1: Invasive lobular carcinoma comprises about 10-15% of breast cancers. Doesn't make a lump, so difficult to find on imaging…
Inspire @teaminspire
RT @DrAttai: #bcsm for those who didn't see it, @double_whammied wrote a nice post about invasive lobular breast cancer, topic for tonight…
IBC Research Fdn @IBCResearch
RT @jrgralow: T1: Invasive lobular carcinoma comprises about 10-15% of breast cancers. Doesn't make a lump, so difficult to find on imaging…
Double Whammy @double_whammied
T1: #Lobular also doesn't image as well as ductal. My mammogram saw nothing, even on the day the ultrasound found 4 masses. We need more research on imaging for #lobular. #BCSM
Steffi Oesterreich @oesterreichs
@stales @double_whammied @LobularBCA @jrgralow Although "only" consisting of 10-15% of all breast cancers, this translated into approximately 20,000 new cases of LBC in the US alone #BCSM
Double Whammy @double_whammied
RT @oesterreichs: @stales @double_whammied @LobularBCA @jrgralow It is the second most common histologic subtype of breast cancer, represen…
Mighty Casey Quinlan @MightyCasey
RT @jrgralow: T1: Invasive lobular carcinoma comprises about 10-15% of breast cancers. Doesn't make a lump, so difficult to find on imaging…
Steffi Oesterreich @oesterreichs
@MjoconorMary @ihatebreastcanc @Adrianvlee ILC tend to grow slower with lower proliferation markers and also tend to recur later #BCSM
Jay Peterson @Jpete008
My ILC was found in pathology after excision for DCIS. Not on mammo, mot cat scan, not on MRI prior to surgery. #bcsm
Barbara Jacoby @letlifehappen
RT @DiepFlapBreast: This year, #PRMAPlasticSurgery surgeon Dr. Oscar Ochoa will be joining the team of experts presenting at the FORCE Conf…
Dr. Kelly Shanahan @stage4kelly
@IBCResearch Hi Ginny. Thought you were going to rest, hint, hint. #bcsm
Elizabeth Viggiano @EV11PDX
imaging doesn't detect any of my peritoneal/ovarian or colon mets... #bcsm
Dr. Deanna Attai @DrAttai
@oesterreichs @stales @double_whammied @LobularBCA @jrgralow #bcsm T1 exactly - the cells spread diffusely, get into the nooks and crannies of the breast, less likely to form a defined lump. Harder to detect "nests" of cells vs a lump
Dennis Keim @denniskeim
RT @oesterreichs: @stales @double_whammied @LobularBCA @jrgralow It is the second most common histologic subtype of breast cancer, represen…
Katherine OBrien @ihatebreastcanc
RT @oesterreichs: @MjoconorMary @ihatebreastcanc @Adrianvlee ILC tend to grow slower with lower proliferation markers and also tend to recu…
Liza Bernstein @itsthebunk
RT @double_whammied: T1: #Lobular also doesn't image as well as ductal. My mammogram saw nothing, even on the day the ultrasound found 4 ma…
Dr. Kelly Shanahan @stage4kelly
@akknowles1 Give your H a big hug - and keep one for yourself momma! #bcsm
Alicia C. Staley @stales
RT @LobularBCA T1: Lobular breast cancer is a different disease. But it's treated with the same protocols as #IDC #bcsm
Dennis Keim @denniskeim
RT @jrgralow: T1: Invasive lobular carcinoma comprises about 10-15% of breast cancers. Doesn't make a lump, so difficult to find on imaging…
Liza Bernstein @itsthebunk
RT @stales: T1: @double_whammied @oesterreichs @LobularBCA @jrgralow -- What is Lobular Breast Cancer? What do we need to know? #bcsm
The IBC Network Foundation @TalkIBC
RT @DrAttai: @oesterreichs @stales @double_whammied @LobularBCA @jrgralow #bcsm T1 exactly - the cells spread diffusely, get into the nooks…
Liza Bernstein @itsthebunk
RT @LobularBCA: T1: Lobular breast cancer is a different disease. But it's treated with the same protocols as #IDC #bcsm That is not goo…
Julie Gralow @jrgralow
T1: A distinguishing biologic feature of lobular breast cancer is the lack of a cell-to-cell adhesion gene (CDH1) and associated protein (e-cadherin), which makes the cells form single-file lines instead of lumps! They don't stick together. Again, no lumps! #bcsm
Zula @ZulaQi
RT @double_whammied: T1: #Lobular also doesn't image as well as ductal. My mammogram saw nothing, even on the day the ultrasound found 4 ma…
Lobular Breast Cancer Alliance @LobularBCA
@oesterreichs @stales @double_whammied @jrgralow With 40,000 new cases a year, ILC is the #6 most frequently diagnosed cancer of women in the US #bcsm
Steffi Oesterreich @oesterreichs
RT @jrgralow: T1: A distinguishing biologic feature of lobular breast cancer is the lack of a cell-to-cell adhesion gene (CDH1) and associa…
Dennis Keim @denniskeim
RT @Jpete008: My ILC was found in pathology after excision for DCIS. Not on mammo, mot cat scan, not on MRI prior to surgery. #bcsm
Double Whammy @double_whammied
That's totally what happened with me, @DrAttai. Had mamms for YEARS and always got an all-clear. Wasn't until I saw a change in my breast that they found my stage 3A lobular. Do docs all know this? #BCSM
Dr. Deanna Attai @DrAttai
@EV11PDX #bcsm T1 yes the mets have a "sneaky" growth pattern as well. Clumps of cells which are hard to detect, versus a more defined lump. And different pattern of mets
Alexis S @Lex_in_CO
@jrgralow Interesting. Wasn’t diagnosed as lobular but does sound very much like mine. #bcsm. I felt like one was heavier no discernible lump.
Liza Bernstein @itsthebunk
The term "breastcancer" encompasses quite a few different subtypes. Tonight we are learning all about #Lobular #BreastCancer. It's a Masterclass! #bcsm
Liza Bernstein @itsthebunk
RT @LobularBCA: @oesterreichs @stales @double_whammied @jrgralow With 40,000 new cases a year, ILC is the #6 most frequently diagnosed canc…
Liza Bernstein @itsthebunk
RT @jrgralow: T1: A distinguishing biologic feature of lobular breast cancer is the lack of a cell-to-cell adhesion gene (CDH1) and associa…
Julie Gralow @jrgralow
T1: Also, 2 subtypes of invasive lobular breast cancer - classical (the majority) and pleomorphic (more aggressive features). #bcsm
Alicia C. Staley @stales
RT @TalkIBC No lump. yes, there are breast cancers without a lump. #bcsm
Dr. Kelly Shanahan @stage4kelly
Learning so much about #ILC from some of the top experts in the field #bcsm
Kala Menon, PhD MSCE @menon_kala
RT @jrgralow: T1: A distinguishing biologic feature of lobular breast cancer is the lack of a cell-to-cell adhesion gene (CDH1) and associa…
IBC Research Fdn @IBCResearch
@stage4kelly Hi Kelly....I'll mostly read 😊 always want to learn. TY for caring & holding space. 😘 #bcsm
Alicia C. Staley @stales
RT @jrgralow T1: Also, 2 subtypes of invasive lobular breast cancer - classical (the majority) & pleomorphic -more aggressive features #bcsm
Lobular Breast Cancer Alliance @LobularBCA
@EV11PDX RECIST measurable disease is a critical issue for #lobular patients. If patients can't qualify for studies, we will never learn about this disease #bcsm #amsm
Dr. Deanna Attai @DrAttai
@double_whammied #bcsm I think docs know this - but our imaging is limited. You can have normal mammo / US / MRI. So that's why also important to pay attention to breast shape, size, contour changes
Mia Spano-Curtiss & Sondra Price @BSBreastCancer
RT @double_whammied: T1: #Lobular also doesn't image as well as ductal. My mammogram saw nothing, even on the day the ultrasound found 4 ma…
Double Whammy @double_whammied
More on this #lobular feature, e-cadherin, here: https://t.co/qXICe3IQDQ #bcsm
Julie Gralow @jrgralow
RT @stales: RT @TalkIBC No lump. yes, there are breast cancers without a lump. #bcsm
Dr. Kelly Shanahan @stage4kelly
@double_whammied Or markers. Or something to find this sneaky form of BC. #bcsm
Mia Spano-Curtiss & Sondra Price @BSBreastCancer
#BCSM
Liza Bernstein @itsthebunk
RT @DrAttai: @EV11PDX #bcsm T1 yes the mets have a "sneaky" growth pattern as well. Clumps of cells which are hard to detect, versus a more…
Alicia C. Staley @stales
Yes, indeed! That's how we roll on #BCSM RT @stage4kelly Learning so much about #ILC from some of the top experts in the field #bcsm
IBC Research Fdn @IBCResearch
RT @itsthebunk: The term "breastcancer" encompasses quite a few different subtypes. Tonight we are learning all about #Lobular #BreastCance
Dr. Kelly Shanahan @stage4kelly
RT @oesterreichs: @stales @double_whammied @LobularBCA @jrgralow Although "only" consisting of 10-15% of all breast cancers, this translate…
Liza Bernstein @itsthebunk
RT @double_whammied: That's totally what happened with me, @DrAttai. Had mamms for YEARS and always got an all-clear. Wasn't until I saw a…
Mighty Casey Quinlan @MightyCasey
RT @oesterreichs: @stales @double_whammied @LobularBCA @jrgralow #bcsm The main difference is that the cells lack e-cadherin, which glues c…
Alicia C. Staley @stales
@fckboobiecancer hello! #bcsm
Dr. Kelly Shanahan @stage4kelly
RT @oesterreichs: @MjoconorMary @ihatebreastcanc @Adrianvlee ILC tend to grow slower with lower proliferation markers and also tend to recu…
Liza Bernstein @itsthebunk
RT @DrAttai: @stales @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm T1 lobular BC accounts for ~15% of all invasive breast canc…
Mighty Casey Quinlan @MightyCasey
RT @double_whammied: More on this #lobular feature, e-cadherin, here: https://t.co/qXICe3IQDQ #bcsm https://t.co/LJrvAogELW
Alicia C. Staley @stales
RT @double_whammied More on #lobular -- e-cadherin, here: https://t.co/ZJf9i1tatA #bcsm
Katherine OBrien @ihatebreastcanc
#bcsm #lobmob #lobularbreastcancer
Mighty Casey Quinlan @MightyCasey
RT @LobularBCA: @EV11PDX RECIST measurable disease is a critical issue for #lobular patients. If patients can't qualify for studies, we wi…
Double Whammy @double_whammied
Yes there are! Both #lobular and #inflammatory #breastcancer are weird in that they don't necessarily make a lump. Look for a change in your breast, not necessarily a lump. #bcsm
Dr. Kelly Shanahan @stage4kelly
RT @jrgralow: T1: A distinguishing biologic feature of lobular breast cancer is the lack of a cell-to-cell adhesion gene (CDH1) and associa…
Alicia C. Staley @stales
@ihatebreastcanc welcome! #bcsm
Liza Bernstein @itsthebunk
RT @DrAttai: @double_whammied #bcsm I think docs know this - but our imaging is limited. You can have normal mammo / US / MRI. So that's wh…
Dr. Rebecca B. Riggins @Prof_Riggins
RT @LobularBCA: @EV11PDX RECIST measurable disease is a critical issue for #lobular patients. If patients can't qualify for studies, we wi…
Lobular Research @LobularResearch
Any trials or progress with imaging diagnostics, esp for post-diagnosis surveillance? (metastatic population often denied trial enrollment due to RECIST criteria). #lobular #BCSM
Liza Bernstein @itsthebunk
RT @stales: RT @jrgralow T1: Also, 2 subtypes of invasive lobular breast cancer - classical (the majority) & pleomorphic -more aggressive f…
Mighty Casey Quinlan @MightyCasey
RT @stage4kelly: @double_whammied Or markers. Or something to find this sneaky form of BC. #bcsm
Alicia C. Staley @stales
Welcome to all the new folks joining the chat tonight! #bcsm
Katherine OBrien @ihatebreastcanc
RT @LobularBCA: T1: Lobular breast cancer is a different disease. But it's treated with the same protocols as #IDC #bcsm That is not goo…
Dennis Keim @denniskeim
@Jpete008 What's a mot cat scan? #bcsm
The IBC Network Foundation @TalkIBC
I knew a lady who wanted an lob mob clinic at MDA like the IBC clinic. She couldn't get the pts population. What can we do? #bcsm
Liza Bernstein @itsthebunk
RT @stage4kelly: Learning so much about #ILC from some of the top experts in the field #bcsm https://t.co/GRKvsDiGRi
Mia Spano-Curtiss & Sondra Price @BSBreastCancer
#BCSM
Mighty Casey Quinlan @MightyCasey
RT @double_whammied: Yes there are! Both #lobular and #inflammatory #breastcancer are weird in that they don't necessarily make a lump. Loo…
Alicia C. Staley @stales
Hello to all the lurkers :-) #bcsm
Liza Bernstein @itsthebunk
RT @stales: RT @TalkIBC No lump. yes, there are breast cancers without a lump. #bcsm
Katherine OBrien @ihatebreastcanc
RT @stales: @ihatebreastcanc welcome! #bcsm
Dr. Kelly Shanahan @stage4kelly
RT @jrgralow: T1: Also, 2 subtypes of invasive lobular breast cancer - classical (the majority) and pleomorphic (more aggressive features).…
Dr. Deanna Attai @DrAttai
#bcsm perhaps @jrgralow can comment on this - lobular often diagnosed later stage but usually low grade - chemo used but may not be effective
Mia Spano-Curtiss & Sondra Price @BSBreastCancer
#BCSM
flora migyanka @maggiemoo09
RT @jrgralow: T1: A distinguishing biologic feature of lobular breast cancer is the lack of a cell-to-cell adhesion gene (CDH1) and associa…
Mia Spano-Curtiss & Sondra Price @BSBreastCancer
#BCSM
flora migyanka @maggiemoo09
RT @oesterreichs: Join us for a discussion on ILC tonight 9pm EST. #bcsm https://t.co/FN0Te7wjOY
Liza Bernstein @itsthebunk
RT @DrAttai: #bcsm perhaps @jrgralow can comment on this - lobular often diagnosed later stage but usually low grade - chemo used but may n…
Kala Menon, PhD MSCE @menon_kala
RT @jrgralow: T1: Also, 2 subtypes of invasive lobular breast cancer - classical (the majority) and pleomorphic (more aggressive features).…
Dr. Kelly Shanahan @stage4kelly
@LobularBCA @EV11PDX Us bone mets folks have the same issue. #bcsm
Alicia C. Staley @stales
RT @double_whammied: Yes there are! Both #lobular and #inflammatory #breastcancer are weird in that they don't necessarily make a lump. Loo…
Double Whammy @double_whammied
Yes, #LobularBC's #metastatic spread pattern can be very different too. This is very important for both PCPs and oncs to know! #BCSM
april knowles @akknowles1
I was diagnosedwith mixed carcinoma. Does that mean two different cancers or my cancer has characteristics of both lobular and ductal ? #bcsm
Dennis Keim @denniskeim
RT @jrgralow: T1: Also, 2 subtypes of invasive lobular breast cancer - classical (the majority) and pleomorphic (more aggressive features).…
Alicia C. Staley @stales
RT @LobularBCA: @oesterreichs @stales @double_whammied @jrgralow With 40,000 new cases a year, ILC is the #6 most frequently diagnosed canc…
Mia Spano-Curtiss & Sondra Price @BSBreastCancer
#BCSM This
The IBC Network Foundation @TalkIBC
@stales reading more than comments but here and RT! #bcsm
Alicia C. Staley @stales
RT @DrAttai: @oesterreichs @stales @double_whammied @LobularBCA @jrgralow #bcsm T1 exactly - the cells spread diffusely, get into the nooks…
Mia Spano-Curtiss & Sondra Price @BSBreastCancer
#BCSM
IBC Research Fdn @IBCResearch
@jrgralow Interesting. #IBC is high in e-cadherin yet usually no lump. Most are ductal in origin though. #bcsm
Dr. Deanna Attai @DrAttai
@double_whammied #bcsm yes but inflammatory CA (IBC) usually is ductal, not lobular. But similarities in terms of sneakiness
Double Whammy @double_whammied
Really great points, @DrAttai! #BCSM
Dennis Keim @denniskeim
RT @stales: RT @TalkIBC No lump. yes, there are breast cancers without a lump. #bcsm
Liza Bernstein @itsthebunk
@LobularResearch What is "RECIST" criteria? Please explain! Thx! #bcsm
Jamie Holloway, PhD @jamienholloway
Hi friends, sorry I'm late to the party! Trying to keep a normal schedule in the summer is tough! #bcsm
flora migyanka @maggiemoo09
RT @double_whammied: Join me @jrgralow and @oesterreichs for a special #bcsm tweetchat on "sneaky" #lobular #breastcancer or #ILC. #lobmob
Mighty Casey Quinlan @MightyCasey
RT @IBCResearch: @jrgralow Interesting. #IBC is high in e-cadherin yet usually no lump. Most are ductal in origin though. #bcsm
Hillary Stires, PhD @HillStirSci
@LobularResearch Hopefully! So far they've found 18F-Fluciclovine may be better than standard imaging. Future studies will hopefully show whether this is true in a larger cohort. https://t.co/6SJHyozSsf #bcsm
Liza Bernstein @itsthebunk
RT @double_whammied: Yes, #LobularBC's #metastatic spread pattern can be very different too. This is very important for both PCPs and oncs…
flora migyanka @maggiemoo09
RT @Prof_Riggins: This promises great talks from @mjsikora @oesterreichs @Adrianvlee and Myles Brown @DanaFarber on #lobular breast cancer…
Adrian Lee @Adrianvlee
@double_whammied Our recent paper showing loss of E-cadherin (CDH1) in ILC results in increased growth factor (IGF) signaling - a potential new therapeutic target #BCSM https://t.co/xxgyoVPml6
Dennis Keim @denniskeim
RT @DrAttai: #bcsm perhaps @jrgralow can comment on this - lobular often diagnosed later stage but usually low grade - chemo used but may n…
The IBC Network Foundation @TalkIBC
@DrAttai @double_whammied yes and can be both but my question is can we get a center to be a center of excellence like MDA for IBC? #bcsm
Alicia C. Staley @stales
@jamienholloway hey hey hey! #bcsm
Double Whammy @double_whammied
Just a reminder to all in the #BCSM tweetchat on #lobular #breastcancer (esp myself) to add #BCSM to your tweets!
Elizabeth Viggiano @EV11PDX
Also 18-FES, but neither approved so can't get insurance to approve today #bcsm
Dr. Kelly Shanahan @stage4kelly
RT @HillStirSci: @LobularResearch Hopefully! So far they've found 18F-Fluciclovine may be better than standard imaging. Future studies will…
Liza Bernstein @itsthebunk
Important info for #bcsm re lobular mets:
Alicia C. Staley @stales
@TalkIBC Hello, hello!! #bcsm
Dr. Deanna Attai @DrAttai
@akknowles1 #bcsm common misconception that a "tumor" is only one cell type. Many are heterogeneous - meaning several cell clones / populations. Mixed usually means both cell types
Mighty Casey Quinlan @MightyCasey
RT @Adrianvlee: @double_whammied Our recent paper showing loss of E-cadherin (CDH1) in ILC results in increased growth factor (IGF) signali…
Liza Bernstein @itsthebunk
@jamienholloway Jamie! Hi! XOXOX :-) #bcsm
Alexis S @Lex_in_CO
Yes. Mine was also highly hormone sensitive. Hard to measure a discernible mass but I don’t think it was classed as “lobular” #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
RT @HillStirSci: @LobularResearch Hopefully! So far they've found 18F-Fluciclovine may be better than standard imaging. Future studies will…
Dr. Rebecca B. Riggins @Prof_Riggins
RT @Adrianvlee: @double_whammied Our recent paper showing loss of E-cadherin (CDH1) in ILC results in increased growth factor (IGF) signali…
Mighty Casey Quinlan @MightyCasey
RT @HillStirSci: @LobularResearch Hopefully! So far they've found 18F-Fluciclovine may be better than standard imaging. Future studies will…
Mighty Casey Quinlan @MightyCasey
RT @DrAttai: @akknowles1 #bcsm common misconception that a "tumor" is only one cell type. Many are heterogeneous - meaning several cell clo…
Double Whammy @double_whammied
Wow, this is exciting. Thanks for sharing that @Adrianvlee, #BCSM #goresearch
Liza Bernstein @itsthebunk
RT @DrAttai: @akknowles1 #bcsm common misconception that a "tumor" is only one cell type. Many are heterogeneous - meaning several cell clo…
Double Whammy @double_whammied
RT @Lex_in_CO: Yes. Mine was also highly hormone sensitive. Hard to measure a discernible mass but I don’t think it was classed as “lobular…
Dr. Deanna Attai @DrAttai
@akknowles1 #bcsm that's why a tumor can for example also have ER+ and ER- cells, or Her2+ and Her2- within the same mass
Neelima Denduluri @ndenduluri1
@itsthebunk @LobularResearch #bcsm https://t.co/u6hy5ze7id
Dennis Keim @denniskeim
RT @DrAttai: @akknowles1 #bcsm that's why a tumor can for example also have ER+ and ER- cells, or Her2+ and Her2- within the same mass
Dr. Kelly Shanahan @stage4kelly
A major frustration is insurance coverage for promising but not approved techniques #bcsm
Jamie Holloway, PhD @jamienholloway
@itsthebunk Hi! Was thinking about you today! We need to catch up soon! #bcsm
Matthew J. Sikora @mjsikora
@HillStirSci @LobularResearch There was discussion at the first lobular symposium over whether radiolabeled Estradiol might be ideal for ILC since it's so ER-positive, but not aware of any recent data. #bcsm
Julie Gralow @jrgralow
T1: Classic breast ca staging doesn't fit for lobular - because of "single-file" growth, lobulars extend long distances. Because "T" in "TNM" is length, lobulars always reported as big. But within same size, lots less cancer cells than w/ ductal! #bcsm https://t.co/IXIkXNMmIy
Neelima Denduluri @ndenduluri1
@itsthebunk @LobularResearch #bcsm link attached https://t.co/u6hy5ze7id
Angela Alexander PhD @thecancergeek
Howdy #bcsm. Running late tonight, I'll need to catch up with y'all for a few mins #bcsm
Dr. Deanna Attai @DrAttai
@itsthebunk @LobularResearch #bcsm RECIST response evaluation criteria in solid tumors https://t.co/6JG7FyWGvz
The IBC Network Foundation @TalkIBC
RT @jrgralow: T1: Classic breast ca staging doesn't fit for lobular - because of "single-file" growth, lobulars extend long distances. Beca…
Liza Bernstein @itsthebunk
#bcsm
Double Whammy @double_whammied
RT @jrgralow: T1: Classic breast ca staging doesn't fit for lobular - because of "single-file" growth, lobulars extend long distances. Beca…
april knowles @akknowles1
@DrAttai Would I know if my mets were lobular or ductal? #bcsm
Hillary Stires, PhD @HillStirSci
@DrAttai @jrgralow That's our general understanding! https://t.co/6ZiN3UzMGF #bcsm
Dr. Deanna Attai @DrAttai
@itsthebunk @LobularResearch sorry for wikipedia ref it was the first that popped up #bcsm
Liza Bernstein @itsthebunk
@ndenduluri1 @LobularResearch Thanks :) #bcsm
Mighty Casey Quinlan @MightyCasey
RT @jrgralow: T1: Classic breast ca staging doesn't fit for lobular - because of "single-file" growth, lobulars extend long distances. Beca…
Liza Bernstein @itsthebunk
RT @DrAttai: @itsthebunk @LobularResearch #bcsm RECIST response evaluation criteria in solid tumors https://t.co/6JG7FyWGvz
Katherine OBrien @ihatebreastcanc
RT @HillStirSci: @LobularResearch Hopefully! So far they've found 18F-Fluciclovine may be better than standard imaging. Future studies will…
Neelima Denduluri @ndenduluri1
@itsthebunk @LobularResearch #bcsm rECIST is a standard way to assess if a treatment is working on a clinical trial
Liza Bernstein @itsthebunk
@DrAttai @LobularResearch Thanks! #bcsm
patty spears @paspears88
@oesterreichs @ihatebreastcanc A friend was diagnosed with metastatic lobular -- it was around her stomach.... it seemed hard to monitor so she was always a anxious about whether therapy was working.... it was so different for her compared to others in the group.... #bcsm
Double Whammy @double_whammied
I'd love to hear more about this, @mjsikora. #BCSM
Katherine OBrien @ihatebreastcanc
RT @jrgralow: T1: Invasive lobular carcinoma comprises about 10-15% of breast cancers. Doesn't make a lump, so difficult to find on imaging…
Katherine OBrien @ihatebreastcanc
RT @Adrianvlee: @double_whammied Our recent paper showing loss of E-cadherin (CDH1) in ILC results in increased growth factor (IGF) signali…
Phyllis Johnson @mrsphjohnson
RT @jrgralow: T1: Invasive lobular carcinoma comprises about 10-15% of breast cancers. Doesn't make a lump, so difficult to find on imaging…
Katherine OBrien @ihatebreastcanc
RT @jrgralow: T1: A distinguishing biologic feature of lobular breast cancer is the lack of a cell-to-cell adhesion gene (CDH1) and associa…
Julie Gralow @jrgralow
Classical lobulars are strongly ER/PR+, HER2 negative, low grade. Little value to chemo and lots of benefit from endocrine. But all endocrine might not be the same! Ongoing studies. #bcsm https://t.co/D8JX2mq6IW
Dr. Kelly Shanahan @stage4kelly
@mjsikora @HillStirSci @LobularResearch Would there be that same problem of not enough mass for an imaging technique to pick up lobular, since it’s more likely to be in sheets then clumps? Or is this marker so much more avid for lobular that it will register on imaging? #bcsm
Double Whammy @double_whammied
RT @akknowles1: @DrAttai Would I know if my mets were lobular or ductal? #bcsm
Dr. Deanna Attai @DrAttai
@mjsikora @HillStirSci @LobularResearch #bcsm that would be pretty cool!
Liza Bernstein @itsthebunk
RT @jrgralow: T1: Classic breast ca staging doesn't fit for lobular - because of "single-file" growth, lobulars extend long distances. Beca…
Steffi Oesterreich @oesterreichs
@akknowles1 #bcsm Interesting question, we don't know much about it. Limited understanding, we hope that genomics and transcriptomics will help to improve understanding. Great start with https://t.co/lBcaSPAb8i
Katherine OBrien @ihatebreastcanc
RT @jrgralow: Lots of lobular breast cancer patients on this chat! #bcsm
Susan Strong @1strongheartnow
@stales Hi, yes I’m lurking. #bcsm #bcsm
Double Whammy @double_whammied
RT @stage4kelly: A major frustration is insurance coverage for promising but not approved techniques #bcsm https://t.co/0jAiXN7FwD
Liza Bernstein @itsthebunk
@jamienholloway Me too and YES! #bcsm
Katherine OBrien @ihatebreastcanc
RT @akknowles1: I was diagnosedwith mixed carcinoma. Does that mean two different cancers or my cancer has characteristics of both lobular…
Alexis S @Lex_in_CO
Should each met site be tested??? #bcsm
Liza Bernstein @itsthebunk
RT @stage4kelly: A major frustration is insurance coverage for promising but not approved techniques #bcsm https://t.co/0jAiXN7FwD
Dr. Kelly Shanahan @stage4kelly
#BCSM My brain is loving all this learning! Thank you to all the experts here teaching us so much about #ILC
Katherine OBrien @ihatebreastcanc
RT @jrgralow: T1: Also, 2 subtypes of invasive lobular breast cancer - classical (the majority) and pleomorphic (more aggressive features).…
Katherine OBrien @ihatebreastcanc
RT @mjsikora: Hello BCSM! Matt - scientist and lobular researcher from Colorado. Long time BCSM lurker. #bcsm
Katherine OBrien @ihatebreastcanc
RT @LobularResearch: Any trials or progress with imaging diagnostics, esp for post-diagnosis surveillance? (metastatic population often de…
Liza Bernstein @itsthebunk
RT @jrgralow: Classical lobulars are strongly ER/PR+, HER2 negative, low grade. Little value to chemo and lots of benefit from endocrine. B…
Dennis Keim @denniskeim
RT @DrAttai: @akknowles1 #bcsm common misconception that a "tumor" is only one cell type. Many are heterogeneous - meaning several cell clo…
Liza Bernstein @itsthebunk
RT @paspears88: @oesterreichs @ihatebreastcanc A friend was diagnosed with metastatic lobular -- it was around her stomach.... it seemed ha…
Dr. Deanna Attai @DrAttai
@Lex_in_CO #bcsm generally recommended to biopsy new met site but not all of them
Katherine OBrien @ihatebreastcanc
RT @paspears88: @oesterreichs @ihatebreastcanc A friend was diagnosed with metastatic lobular -- it was around her stomach.... it seemed ha…
Dennis Keim @denniskeim
RT @jrgralow: T1: A distinguishing biologic feature of lobular breast cancer is the lack of a cell-to-cell adhesion gene (CDH1) and associa…
Julie Gralow @jrgralow
Would be great if we could define a role for IGF (insulin-like growth factor) targeted agents in invasive lobular breast cancer. #bcsm https://t.co/hKJzEYgSsN
Neelima Denduluri @ndenduluri1
@itsthebunk #bcsm Tumor can also develop along the wall of the gastrointestinal system - sometimes seen by endoscopy
Dennis Keim @denniskeim
RT @Adrianvlee: @double_whammied Our recent paper showing loss of E-cadherin (CDH1) in ILC results in increased growth factor (IGF) signali…
Liza Bernstein @itsthebunk
@DrAttai @LobularResearch No worries! It helped! #bcsm
Liza Bernstein @itsthebunk
#bcsm
Liza Bernstein @itsthebunk
@ndenduluri1 @LobularResearch Thanks! #bcsm
Jay Peterson @Jpete008
RT @jrgralow: Classical lobulars are strongly ER/PR+, HER2 negative, low grade. Little value to chemo and lots of benefit from endocrine. B…
Dennis Keim @denniskeim
RT @DrAttai: @stales @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm T1 lobular BC accounts for ~15% of all invasive breast canc…
Dennis Keim @denniskeim
RT @double_whammied: Yes there are! Both #lobular and #inflammatory #breastcancer are weird in that they don't necessarily make a lump. Loo…
Dr. Kelly Shanahan @stage4kelly
Research, smart research asking the right questions, is what we all need. #ResearchNotRibbons #bcsm
Liza Bernstein @itsthebunk
RT @ndenduluri1: @itsthebunk #bcsm Tumor can also develop along the wall of the gastrointestinal system - sometimes seen by endoscopy
Jay Peterson @Jpete008
@jrgralow At least I’m classic in something. #bcsm
Dennis Keim @denniskeim
RT @Lex_in_CO: Yes. Mine was also highly hormone sensitive. Hard to measure a discernible mass but I don’t think it was classed as “lobular…
Mighty Casey Quinlan @MightyCasey
RT @jrgralow: Would be great if we could define a role for IGF (insulin-like growth factor) targeted agents in invasive lobular breast canc…
Dennis Keim @denniskeim
RT @double_whammied: T1: #Lobular also doesn't image as well as ductal. My mammogram saw nothing, even on the day the ultrasound found 4 ma…
Liza Bernstein @itsthebunk
RT @stage4kelly: #BCSM My brain is loving all this learning! Thank you to all the experts here teaching us so much about #ILC https://t.co/…
Dennis Keim @denniskeim
RT @double_whammied: Yes, #LobularBC's #metastatic spread pattern can be very different too. This is very important for both PCPs and oncs…
Liza Bernstein @itsthebunk
@stage4kelly Ditto! #bcsm
Lobular Breast Cancer Alliance @LobularBCA
Endocrine response trial inclusionary of ILC at @Otto_DFCI #bcsm #lobular
Mary O'Connor @MjoconorMary
@mjsikora @HillStirSci @LobularResearch #bcsm this sounds like an excellent approach but who should be targeted premenopausal women have such variation in breast cyclically and high density so may be difficult to detect changes
Alicia C. Staley @stales
T2 coming up! #bcsm
Lobular Research @LobularResearch
Probably getting way ahead of myself... but anyone exploring Immuno-Oncology approaches beyond checkpoint blockade? Any potential/attractive cell surface targets that could be exploited with CAR-T or CAR-NK approaches? #BCSM #lobular
Double Whammy @double_whammied
Here's a clinical trial that's specifically looking at #endocrine response in lobular #breastcancer Multi center trial across the U.S. #BCSM https://t.co/Y7KpETQo8Y
Alicia C. Staley @stales
Great conversation so far - I'm learning so much! #bcsm
Dr. Kelly Shanahan @stage4kelly
@itsthebunk It makes my brain hurt, but it’s a good kind of pain, just like after a workout in the gym. #bcsm
Double Whammy @double_whammied
RT @stage4kelly: @itsthebunk It makes my brain hurt, but it’s a good kind of pain, just like after a workout in the gym. #bcsm
Matthew J. Sikora @mjsikora
@jrgralow A key focus in my lab is trying to understand why ER behaves differently in #lobular, and endocrine rx work differently. We think it might be linked to lack of chemo response too, but early stages of the research. #bcsm
Shanna Marzilli @Shanna_Marzilli
@jrgralow Value of chemo with high oncotype? #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
RT @double_whammied: Here's a clinical trial that's specifically looking at #endocrine response in lobular #breastcancer Multi center trial…
Dennis Keim @denniskeim
RT @ndenduluri1: @itsthebunk #bcsm Tumor can also develop along the wall of the gastrointestinal system - sometimes seen by endoscopy
Mary O'Connor @MjoconorMary
@jrgralow #bcsm another major point of difference
Dr. Kelly Shanahan @stage4kelly
RT @double_whammied: Here's a clinical trial that's specifically looking at #endocrine response in lobular #breastcancer Multi center trial…
Mighty Casey Quinlan @MightyCasey
RT @double_whammied: Here's a clinical trial that's specifically looking at #endocrine response in lobular #breastcancer Multi center trial…
Double Whammy @double_whammied
RT @mjsikora: @jrgralow A key focus in my lab is trying to understand why ER behaves differently in #lobular, and endocrine rx work differe…
Dr. Rebecca B. Riggins @Prof_Riggins
RT @mjsikora: @jrgralow A key focus in my lab is trying to understand why ER behaves differently in #lobular, and endocrine rx work differe…
Mighty Casey Quinlan @MightyCasey
RT @LobularResearch: Probably getting way ahead of myself... but anyone exploring Immuno-Oncology approaches beyond checkpoint blockade? An…
Julie Gralow @jrgralow
Another tricky feature of lobular ca - when they metastasize they also grow in sheets or lines, not lumps. VERY hard to monitor response. Many recurrent lobular cancers diagnosed when patient goes to abdominal/pelvic surgery for another reason. #bcsm https://t.co/y1ncOfdcFJ
Liza Bernstein @itsthebunk
@stage4kelly Yes! LOL! :-) #bcsm
Liza Bernstein @itsthebunk
RT @double_whammied: Here's a clinical trial that's specifically looking at #endocrine response in lobular #breastcancer Multi center trial…
Stephanie Graff, MD, FACP @DrSGraff
RT @jrgralow: T1: Classic breast ca staging doesn't fit for lobular - because of "single-file" growth, lobulars extend long distances. Beca…
Steffi Oesterreich @oesterreichs
@LobularResearch #bcsm an interesting study starting to analyze immun-infiltrates in ILC: https://t.co/cLrteQSrpN
Liza Bernstein @itsthebunk
RT @LobularResearch: Probably getting way ahead of myself... but anyone exploring Immuno-Oncology approaches beyond checkpoint blockade? An…
Liza Bernstein @itsthebunk
RT @stales: Great conversation so far - I'm learning so much! #bcsm
Alexis S @Lex_in_CO
@jrgralow So what is “strongly” in the 90s or more only over 95%? #bcsm
Alicia C. Staley @stales
T2: Can you share resources, sites, or orgs working on Lobular Breast Cancer? @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm
Stephanie Graff, MD, FACP @DrSGraff
Better late than never! Hello #bcsm
Liza Bernstein @itsthebunk
RT @mjsikora: @jrgralow A key focus in my lab is trying to understand why ER behaves differently in #lobular, and endocrine rx work differe…
mary smith @ggmanonie
RT @itsthebunk: @stage4kelly Yes! LOL! :-) #bcsm
Dr. Deanna Attai @DrAttai
#bcsm do want to mention that some invasive lobular BC do present as a more traditional mass on imaging. Not common, but does happen
When BC Happens @whenBChappens
RT @matteolambe: New #study reporting distribution of clinical subtypes and prognosis of #pregnancy-associated #BreastCancer #PABC in #Kore
Double Whammy @double_whammied
Patients shouldn't feel like the #chemo they had was a waste of time, tho, right @jrgralow? #BCSM
Alicia C. Staley @stales
@DrSGraff welcome to the par-tay #bcsm
Liza Bernstein @itsthebunk
RT @stage4kelly: @itsthebunk It makes my brain hurt, but it’s a good kind of pain, just like after a workout in the gym. #bcsm
Julie Gralow @jrgralow
important research! #bcsm https://t.co/HGxWw17l1D
Liza Bernstein @itsthebunk
RT @double_whammied: Patients shouldn't feel like the #chemo they had was a waste of time, tho, right @jrgralow? #BCSM https://t.co/0BYixeJ…
Liza Bernstein @itsthebunk
RT @DrAttai: #bcsm do want to mention that some invasive lobular BC do present as a more traditional mass on imaging. Not common, but does…
Liza Bernstein @itsthebunk
RT @stales: T2: Can you share resources, sites, or orgs working on Lobular Breast Cancer? @double_whammied @oesterreichs @LobularBCA @jrgr
Dennis Keim @denniskeim
RT @mjsikora: @jrgralow A key focus in my lab is trying to understand why ER behaves differently in #lobular, and endocrine rx work differe…
Dennis Keim @denniskeim
RT @jrgralow: Classical lobulars are strongly ER/PR+, HER2 negative, low grade. Little value to chemo and lots of benefit from endocrine. B…
Lobular Breast Cancer Alliance @LobularBCA
RT @jrgralow: Another tricky feature of lobular ca - when they metastasize they also grow in sheets or lines, not lumps. VERY hard to monit…
mary smith @ggmanonie
RT @jrgralow: important research! #bcsm https://t.co/HGxWw17l1D
Double Whammy @double_whammied
Thank you @DrAttai! I've met #lobmobbers who've had lumps. And many who haven't. #BCSM
Lobular Breast Cancer Alliance @LobularBCA
RT @mjsikora: @jrgralow A key focus in my lab is trying to understand why ER behaves differently in #lobular, and endocrine rx work differe…
Dennis Keim @denniskeim
RT @jrgralow: T1: Classic breast ca staging doesn't fit for lobular - because of "single-file" growth, lobulars extend long distances. Beca…
The IBC Network Foundation @TalkIBC
@DrAttai Same for IBC !0% have a lump. What is it for lob? #bcsm
Mighty Casey Quinlan @MightyCasey
RT @mjsikora: @jrgralow A key focus in my lab is trying to understand why ER behaves differently in #lobular, and endocrine rx work differe…
Elizabeth Viggiano @EV11PDX
Dr.Attai- any treatment response differences between those ILC that form masses and those that don't? #bcsm
Adrian Lee @Adrianvlee
@double_whammied @mjsikora Interesting clinical study (only 3 patients with ILC so preliminary) but showed potential value of estradiol PET for improved staging #BCSM https://t.co/D90sKyBqNt
Dr. Rebecca B. Riggins @Prof_Riggins
@mjsikora @jrgralow And in mine, we’re focused on why tamoxifen in particular may be less effective in #lobular than aromatase inhibitors #bcsm
Zula @ZulaQi
RT @double_whammied: Yes there are! Both #lobular and #inflammatory #breastcancer are weird in that they don't necessarily make a lump. Loo…
Double Whammy @double_whammied
Great question, Elizabeth! #BCSM
Lobular Breast Cancer Alliance @LobularBCA
RT @Prof_Riggins: @mjsikora @jrgralow And in mine, we’re focused on why tamoxifen in particular may be less effective in #lobular than arom…
Liza Bernstein @itsthebunk
RT @double_whammied: Thank you @DrAttai! I've met #lobmobbers who've had lumps. And many who haven't. #BCSM https://t.co/1v1ev9FuPh
Julie Gralow @jrgralow
For classic lobular, ER/PR frequently above 90% positive with strong staining. Not always so strong, but rare to be ER/PR negative unless pleomorphic lobular. #bcsm https://t.co/B0J6aB0yZU
Dr. Rebecca B. Riggins @Prof_Riggins
RT @oesterreichs: @LobularResearch #bcsm an interesting study starting to analyze immun-infiltrates in ILC: https://t.co/cLrteQSrpN
Dennis Keim @denniskeim
RT @LobularResearch: Probably getting way ahead of myself... but anyone exploring Immuno-Oncology approaches beyond checkpoint blockade? An…
Julie Gralow @jrgralow
RT @double_whammied: Here's a clinical trial that's specifically looking at #endocrine response in lobular #breastcancer Multi center trial…
Dr. Deanna Attai @DrAttai
@Shanna_Marzilli @jrgralow #bcsm yes, but most are low score
Steffi Oesterreich @oesterreichs
@stales @double_whammied @LobularBCA @jrgralow #BCSM @LobularBCA keeps their website updated with important research and news about ILC. Including new clinical trials in patients with ILC
Dennis Keim @denniskeim
RT @oesterreichs: @stales @double_whammied @LobularBCA @jrgralow #BCSM @LobularBCA keeps their website updated with important research and…
Elizabeth Viggiano @EV11PDX
ER+/PR- pleomorphic here... #bcsm
Liza Bernstein @itsthebunk
RT @double_whammied: Great question, Elizabeth! #BCSM https://t.co/DkniLoWTiB
Dr. Rebecca B. Riggins @Prof_Riggins
RT @Adrianvlee: @double_whammied @mjsikora Interesting clinical study (only 3 patients with ILC so preliminary) but showed potential value…
Double Whammy @double_whammied
For those who'd like to learn more about @oesterreichs #lobular research, here's a link to her lab. #BCSM
Dr. Deanna Attai @DrAttai
@Shanna_Marzilli @jrgralow #bcsm or present with node metastasis so treated with chemo w/o doing genomic testing - even though chemo may not be effective
Liza Bernstein @itsthebunk
RT @Prof_Riggins: @mjsikora @jrgralow And in mine, we’re focused on why tamoxifen in particular may be less effective in #lobular than arom…
Neelima Denduluri @ndenduluri1
@double_whammied @jrgralow #bcsm In 2018, we can’t yet say no chemo for all lobular - the whole clinical picture needs to be taken into account
Kala Menon, PhD MSCE @menon_kala
RT @jrgralow: Classical lobulars are strongly ER/PR+, HER2 negative, low grade. Little value to chemo and lots of benefit from endocrine. B…
Hillary Stires, PhD @HillStirSci
@DrAttai And some ovarian mets are ductal! We had a patient in tumor boards a few weeks ago with that. The way #lobular is defined is by ecadherin/p120 staining (at least at our cancer center). #bcsm
Alicia C. Staley @stales
RT @jrgralow: For classic lobular, ER/PR frequently above 90% positive with strong staining. Not always so strong, but rare to be ER/PR ne…
Double Whammy @double_whammied
RT @oesterreichs: @stales @double_whammied @LobularBCA @jrgralow #BCSM @LobularBCA keeps their website updated with important research and…
Matthew J. Sikora @mjsikora
RT @Adrianvlee: @double_whammied @mjsikora Interesting clinical study (only 3 patients with ILC so preliminary) but showed potential value…
Mighty Casey Quinlan @MightyCasey
RT @jrgralow: For classic lobular, ER/PR frequently above 90% positive with strong staining. Not always so strong, but rare to be ER/PR ne…
Dennis Keim @denniskeim
RT @oesterreichs: @LobularResearch #bcsm an interesting study starting to analyze immun-infiltrates in ILC: https://t.co/cLrteQSrpN
The IBC Network Foundation @TalkIBC
RT @double_whammied: For those who'd like to learn more about @oesterreichs #lobular research, here's a link to her lab. #BCSM
Alexis S @Lex_in_CO
@double_whammied @jrgralow One benefit of having chemo Before surgery was I FELT it working #BCSM gave me more confidence to continue
Lobular Breast Cancer Alliance @LobularBCA
RT @Adrianvlee: @double_whammied @mjsikora Interesting clinical study (only 3 patients with ILC so preliminary) but showed potential value…
Dr. Rebecca B. Riggins @Prof_Riggins
RT @HillStirSci: @DrAttai And some ovarian mets are ductal! We had a patient in tumor boards a few weeks ago with that. The way #lobular is…
Dennis Keim @denniskeim
RT @Lex_in_CO: @double_whammied @jrgralow One benefit of having chemo Before surgery was I FELT it working #BCSM gave me more confidence t…
❌SouthrnBeachGrl @SouthrnBeachGrl
@double_whammied Sigh, always for the post-menopausal women. The growing numbers of us who are pre are stuck with just one option! #bcsm
Dr. Deanna Attai @DrAttai
@HillStirSci #bcsm - yes - just when we think we have a handle on what cancer is up to... sneaky stuff all around
Lobular Breast Cancer Alliance @LobularBCA
RT @jrgralow: important research! #bcsm https://t.co/HGxWw17l1D
Kala Menon, PhD MSCE @menon_kala
RT @jrgralow: T1: Classic breast ca staging doesn't fit for lobular - because of "single-file" growth, lobulars extend long distances. Beca…
Double Whammy @double_whammied
Always something, right? #breastcancer just HATES to follow rules. ; ) #bcsm
Dennis Keim @denniskeim
RT @ndenduluri1: @double_whammied @jrgralow #bcsm In 2018, we can’t yet say no chemo for all lobular - the whole clinical picture needs to…
Rod Ritchie @malefitness
A case of a man with LBC: https://t.co/rRFEQLhnSG #bcsm
Gary L. Thompson @garyleethompson
Such an amazing amount of clinical, anecdotal, and patient-driven knowledge on #lobular here... would be amazing if at moment of diagnosis this type of info could be in hands of patient and oncologist. #bcsm to the bedside!!
Katherine OBrien @ihatebreastcanc
RT @double_whammied: Always something, right? #breastcancer just HATES to follow rules. ; ) #bcsm https://t.co/2UfnFVFQtB
Steffi Oesterreich @oesterreichs
@double_whammied #BCSM https://t.co/XCz074mkoM Click this link to see our research on ILC!
Julie Gralow @jrgralow
Of course not, all lobulars are not the same, just like all ductals are not the same! #bcsm
Alicia C. Staley @stales
RT @DrAttai: #bcsm do want to mention that some invasive lobular BC do present as a more traditional mass on imaging. Not common, but does…
Lobular Breast Cancer Alliance @LobularBCA
RT @double_whammied: For those who'd like to learn more about @oesterreichs #lobular research, here's a link to her lab. #BCSM
Katherine OBrien @ihatebreastcanc
RT @double_whammied: I'd love to hear more about this, @mjsikora. #BCSM https://t.co/GJ1TkF8YAA
Alicia C. Staley @stales
RT @HillStirSci: @DrAttai And some ovarian mets are ductal! We had a patient in tumor boards a few weeks ago with that. The way #lobular is…
Double Whammy @double_whammied
RT @jrgralow: Of course not, all lobulars are not the same, just like all ductals are not the same! #bcsm https://t.co/5Fe6SKqDYe
Katherine OBrien @ihatebreastcanc
RT @Adrianvlee: @double_whammied @mjsikora Interesting clinical study (only 3 patients with ILC so preliminary) but showed potential value…
Dr. Rebecca B. Riggins @Prof_Riggins
RT @garyleethompson: Such an amazing amount of clinical, anecdotal, and patient-driven knowledge on #lobular here... would be amazing if at…
Dr. Kelly Shanahan @stage4kelly
@EV11PDX Ooohhhhh. Interesting question. I ❤️ #bcsm
Katherine OBrien @ihatebreastcanc
RT @jrgralow: For classic lobular, ER/PR frequently above 90% positive with strong staining. Not always so strong, but rare to be ER/PR ne…
Howard Karpoff @doctorkarpoff
RT @DrAttai: #bcsm do want to mention that some invasive lobular BC do present as a more traditional mass on imaging. Not common, but does…
Liza Bernstein @itsthebunk
RT @oesterreichs: @double_whammied #BCSM https://t.co/XCz074mkoM Click this link to see our research on ILC!
Dr. Kelly Shanahan @stage4kelly
RT @Adrianvlee: @double_whammied @mjsikora Interesting clinical study (only 3 patients with ILC so preliminary) but showed potential value…
Liza Bernstein @itsthebunk
RT @malefitness: A case of a man with LBC: https://t.co/rRFEQLhnSG #bcsm
Katherine OBrien @ihatebreastcanc
RT @DrAttai: @akknowles1 #bcsm common misconception that a "tumor" is only one cell type. Many are heterogeneous - meaning several cell clo…
Double Whammy @double_whammied
Thank you for sharing! #BCSM
Dennis Keim @denniskeim
RT @jrgralow: For classic lobular, ER/PR frequently above 90% positive with strong staining. Not always so strong, but rare to be ER/PR ne…
Dr. Kelly Shanahan @stage4kelly
RT @oesterreichs: @stales @double_whammied @LobularBCA @jrgralow #BCSM @LobularBCA keeps their website updated with important research and…
Katherine OBrien @ihatebreastcanc
RT @stage4kelly: Research, smart research asking the right questions, is what we all need. #ResearchNotRibbons #bcsm https://t.co/aXtiLX8Jo8
Dr. Deanna Attai @DrAttai
#bcsm not aware of any data for difference is treatment response - @jrgralow can you comment on this? Has it even been studied?
Dennis Keim @denniskeim
RT @Prof_Riggins: @mjsikora @jrgralow And in mine, we’re focused on why tamoxifen in particular may be less effective in #lobular than arom…
Matthew J. Sikora @mjsikora
@SouthrnBeachGrl @double_whammied Hopefully we'll know more in the near future about aromatase inhibitor vs tamoxifen in pre-meno. Analysis of two large trials is pending, word is that logistics for ILC-based re-analyses are getting worked out. #bcsm
Dr. Kelly Shanahan @stage4kelly
RT @garyleethompson: Such an amazing amount of clinical, anecdotal, and patient-driven knowledge on #lobular here... would be amazing if at…
Howard Karpoff @doctorkarpoff
RT @jrgralow: important research! #bcsm https://t.co/HGxWw17l1D
patty spears @paspears88
@jrgralow My friend ended up with gall bladder surgery and found out the HT was working ..... there was no cancer seen on her stomach.... but before that, she was a mess... worrying about what was going on... this was over 15 years ago... I would hope for more options today #bcsm
Angela Alexander PhD @thecancergeek
@SouthrnBeachGrl @double_whammied Premenopausal women can take an AI too if they have their ovaries removed or pharmacologically suppressed. Makes quite a lot of sense especially in lobular cases where tamoxifen is proven inferior to AI! #bcsm
Jay Peterson @Jpete008
@jrgralow What about 100% one or the other? ? Mine was 100% PR, always seemed different than most. Any research? #bcsm
Double Whammy @double_whammied
RT @mjsikora: @SouthrnBeachGrl @double_whammied Hopefully we'll know more in the near future about aromatase inhibitor vs tamoxifen in pre-…
Tom Varghese Jr. MD @TomVargheseJr
RT @jrgralow: Classical lobulars are strongly ER/PR+, HER2 negative, low grade. Little value to chemo and lots of benefit from endocrine. B…
Dennis Keim @denniskeim
RT @mjsikora: @HillStirSci @LobularResearch There was discussion at the first lobular symposium over whether radiolabeled Estradiol might b…
Mighty Casey Quinlan @MightyCasey
RT @mjsikora: @SouthrnBeachGrl @double_whammied Hopefully we'll know more in the near future about aromatase inhibitor vs tamoxifen in pre-…
Dennis Keim @denniskeim
RT @double_whammied: Patients shouldn't feel like the #chemo they had was a waste of time, tho, right @jrgralow? #BCSM https://t.co/0BYixeJ…
Double Whammy @double_whammied
RT @thecancergeek: @SouthrnBeachGrl @double_whammied Premenopausal women can take an AI too if they have their ovaries removed or pharmacol…
Dr. Kelly Shanahan @stage4kelly
@DrAttai @jrgralow Any budding postdocs lurking? This could be an interesting and valuable area of research #bcsm
Lobular Breast Cancer Alliance @LobularBCA
RT @mjsikora: @SouthrnBeachGrl @double_whammied Hopefully we'll know more in the near future about aromatase inhibitor vs tamoxifen in pre-…
Dennis Keim @denniskeim
RT @stage4kelly: A major frustration is insurance coverage for promising but not approved techniques #bcsm https://t.co/0jAiXN7FwD
Julie Gralow @jrgralow
Hmmm....I don’t know of any data on differences in treatments/response based on lump or not. I would think it would depend more on the biology. #bcsm
IBC Research Fdn @IBCResearch
RT @malefitness: A case of a man with LBC: https://t.co/rRFEQLhnSG #bcsm
Liza Bernstein @itsthebunk
RT @paspears88: @jrgralow My friend ended up with gall bladder surgery and found out the HT was working ..... there was no cancer seen on h…
Steffi Oesterreich @oesterreichs
#BCSM Our recent studies suggest that there are differences in immun-infiltration and cell metabolism between ILC and IDC, i.e. how cancer cells use nutrients https://t.co/LbR1YDl4js
Dr. Deanna Attai @DrAttai
@Prof_Riggins @mjsikora @jrgralow #bcsm so makes a case to push for ovarian suppression with AI for premenopausal patients with lobular CA? Or not there yet? It's a hard sell to pts
Liza Bernstein @itsthebunk
RT @mjsikora: @SouthrnBeachGrl @double_whammied Hopefully we'll know more in the near future about aromatase inhibitor vs tamoxifen in pre-…
Liza Bernstein @itsthebunk
RT @DrAttai: #bcsm not aware of any data for difference is treatment response - @jrgralow can you comment on this? Has it even been studied…
Double Whammy @double_whammied
RT @Prof_Riggins: @mjsikora @jrgralow And in mine, we’re focused on why tamoxifen in particular may be less effective in #lobular than arom…
Matthew J. Sikora @mjsikora
RT @DrAttai: @Prof_Riggins @mjsikora @jrgralow #bcsm so makes a case to push for ovarian suppression with AI for premenopausal patients wit…
Alexis S @Lex_in_CO
RT @double_whammied: Always something, right? #breastcancer just HATES to follow rules. ; ) #bcsm https://t.co/2UfnFVFQtB
Liza Bernstein @itsthebunk
RT @jrgralow: Hmmm....I don’t know of any data on differences in treatments/response based on lump or not. I would think it would depend mo…
Elizabeth Viggiano @EV11PDX
Steffi-- any break-out for pleomorphic vs classical or Luminal B vs Luminal A #bcsm
Liza Bernstein @itsthebunk
RT @stage4kelly: @DrAttai @jrgralow Any budding postdocs lurking? This could be an interesting and valuable area of research #bcsm
Lobular Breast Cancer Alliance @LobularBCA
RT @oesterreichs: #BCSM Our recent studies suggest that there are differences in immun-infiltration and cell metabolism between ILC and IDC…
Dr. Deanna Attai @DrAttai
@malefitness #bcsm very rare! Thanks for sharing, @malefitness
Ginger Riley @gingerly21
RT @NCICancerStats: Black women are more likely than women of other races/ethnicities to die from breast #cancer. Learn more about this dis…
Dennis Keim @denniskeim
RT @double_whammied: Here's a clinical trial that's specifically looking at #endocrine response in lobular #breastcancer Multi center trial…
Alexis S @Lex_in_CO
RT @DrAttai: @HillStirSci #bcsm - yes - just when we think we have a handle on what cancer is up to... sneaky stuff all around
Alicia C. Staley @stales
RT @oesterreichs @double_whammied #BCSM https://t.co/pqy4gRu7bt Click this link to see our research on ILC!
Mary O'Connor @MjoconorMary
@DrAttai @Shanna_Marzilli @jrgralow #bcsm taking a conservative approach but may not be of great therapeutic value, more research is really needed here
Dr. Kelly Shanahan @stage4kelly
@jrgralow Is there a difference in e cadhedrin in the ones that form lumps versus don’t? Could this potentially be a target? I don’t have lobular so I’m not very familiar but I find all of this fascinating #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
This will be tremendously important for #lobular #bcsm
Alicia C. Staley @stales
Thanks for sharing Rod RT @malefitness A case of a man with LBC: https://t.co/R2Xocf5RKH #bcsm
Double Whammy @double_whammied
I would think that would be a super hard sell. Any patients care to weigh in on #ovariansuppression for #lobular? #BCSM
Rod Ritchie @malefitness
From this study: "Although the rate of male breast cancer in Western countries is approximately 1%, in Tanzania and in Central Africa the rate is 6% or more." #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
RT @oesterreichs: #BCSM Our recent studies suggest that there are differences in immun-infiltration and cell metabolism between ILC and IDC…
Lobular Research @LobularResearch
Is it unrealistic to create an ILC tissue bank to accelerate discoveries? Can the tissue collected by the MBCproject be leveraged? I recall hearing that Genomic Health (OncotypeDX) has 30,000+ ILC tissue samples. Is that accessible / recyclable? #BCSM #lobular
Double Whammy @double_whammied
RT @jrgralow: Hmmm....I don’t know of any data on differences in treatments/response based on lump or not. I would think it would depend mo…
Hank Mardukas @Rawpimple
#bcsm Up to 15 percent of lobular carcinomas can be positive for e-cadherin. Presumed e-cadherin on the surface of tumor is there, but not functional. So get the similar lobular morphology on H&e stain.
Matthew J. Sikora @mjsikora
@DrAttai @Prof_Riggins @jrgralow Not there yet. We just don't have the data for pre-meno yet, and it may be that the endocrine environment in pre-meno makes for a different disease (since ILC are so estrogen-driven). TBD, a couple large trials pending retrospective analysis. #bcsm
Liza Bernstein @itsthebunk
Sorry, friends and colleagues — I have to leave the chat early. Learning so much! My commute is exhausting and I need to rest up. Thanks to all on #bcsm! Have a great week!
Alicia C. Staley @stales
RT @garyleethompson: Such an amazing amount of clinical, anecdotal, and patient-driven knowledge on #lobular here... would be amazing if at…
Liza Bernstein @itsthebunk
RT @malefitness: From this study: "Although the rate of male breast cancer in Western countries is approximately 1%, in Tanzania and in Cen…
Julie Gralow @jrgralow
PR is the most variable (and irreproducible) of the 3 main receptors we test for in breast cancer. We don’t think there is a big difference in endocrine response between, for example, a tumor with 70% vs 100% expression of ER/PR. #bcsm
Dr. Kelly Shanahan @stage4kelly
RT @LobularResearch: Is it unrealistic to create an ILC tissue bank to accelerate discoveries? Can the tissue collected by the MBCproject b…
Alicia C. Staley @stales
RT @jrgralow: Of course not, all lobulars are not the same, just like all ductals are not the same! #bcsm https://t.co/5Fe6SKqDYe
Jamie Holloway, PhD @jamienholloway
@denniskeim Hi, Dennis, missed the meet and greet. Always love your "NED in Nebraska" tag! #bcsm
Alicia C. Staley @stales
RT @jrgralow: Classical lobulars are strongly ER/PR+, HER2 negative, low grade. Little value to chemo and lots of benefit from endocrine. B…
Double Whammy @double_whammied
Do we need to start a new #ILC tissue bank or can we just leverage what already exists in current tissue banks? #lobular #BCSM
Alicia C. Staley @stales
RT @DrAttai: @Prof_Riggins @mjsikora @jrgralow #bcsm so makes a case to push for ovarian suppression with AI for premenopausal patients wit…
Kala Menon, PhD MSCE @menon_kala
RT @jrgralow: Another tricky feature of lobular ca - when they metastasize they also grow in sheets or lines, not lumps. VERY hard to monit…
Alicia C. Staley @stales
RT @Prof_Riggins: @mjsikora @jrgralow And in mine, we’re focused on why tamoxifen in particular may be less effective in #lobular than arom…
Alicia C. Staley @stales
RT @malefitness: From this study: "Although the rate of male breast cancer in Western countries is approximately 1%, in Tanzania and in Cen…
Double Whammy @double_whammied
RT @stales: RT @oesterreichs @double_whammied #BCSM https://t.co/pqy4gRu7bt Click this link to see our research on ILC!
Alicia C. Staley @stales
RT @stage4kelly: Research, smart research asking the right questions, is what we all need. #ResearchNotRibbons #bcsm https://t.co/aXtiLX8Jo8
Dr. Kelly Shanahan @stage4kelly
@itsthebunk You too Liza! #bcsm
Lobular Breast Cancer Alliance @LobularBCA
RT @mjsikora: @DrAttai @Prof_Riggins @jrgralow Not there yet. We just don't have the data for pre-meno yet, and it may be that the endocrin…
Alicia C. Staley @stales
RT @jrgralow: Another tricky feature of lobular ca - when they metastasize they also grow in sheets or lines, not lumps. VERY hard to monit…
Gary L. Thompson @garyleethompson
@itsthebunk Thanks for joining and doing such a great job of self care!! #bcsm
Alicia C. Staley @stales
RT @paspears88: @jrgralow My friend ended up with gall bladder surgery and found out the HT was working ..... there was no cancer seen on h…
Alicia C. Staley @stales
@paspears88 @jrgralow hi patty! #bcsm
Dr. Deanna Attai @DrAttai
@double_whammied #bcsm TEXT / SOFT had ~25% stop therapy due to side effects of hormone blockade. Any endocrine therapy can be a hard sell to start and/or to complete treatment
Steffi Oesterreich @oesterreichs
@stage4kelly @DrAttai @jrgralow #BCSM Lee/Oesterreich Lab is looking to hire a motivated postdoc interested in understanding ILC https://t.co/if6r4PXQxJ
Dr. Rebecca B. Riggins @Prof_Riggins
@DrAttai @mjsikora @jrgralow It’s definitely a hard sell - data from ongoing prospective trials will be key #bcsm
Jay Peterson @Jpete008
RT @double_whammied: Do we need to start a new #ILC tissue bank or can we just leverage what already exists in current tissue banks? #lobul
Iman Mohamed @ImmohMD
@HillStirSci @DrAttai @jrgralow Agree. It can be frustrating to not see a significant response of large lobular cancers to neoadjuvant therapy. Endocrine therapy works better in the neoadjuvant setting for this pathology. #bcsm
Julie Gralow @jrgralow
A definite maybe. Would discuss it for sure, but would factor in grade, amount of disease in the nodes, strength of Er/PR staining, patient preferences, etc! #bcsm
Jay Peterson @Jpete008
RT @LobularResearch: Is it unrealistic to create an ILC tissue bank to accelerate discoveries? Can the tissue collected by the MBCproject b…
Alicia C. Staley @stales
RT @jrgralow: PR is the most variable (and irreproducible) of the 3 main receptors we test for in breast cancer. We don’t think there is a…
Kathy Gori @kathygori
Checking in late...2x bc’er checking in fromfirey norther Ca and so far smokey but unburnt 🍷 Country #bcsm
Howard Karpoff @doctorkarpoff
RT @Rawpimple: #bcsm Up to 15 percent of lobular carcinomas can be positive for e-cadherin. Presumed e-cadherin on the surface of tumor is…
Andrea Borondy Kitts @findlungcancer
Addressing clinician burnout in oncology Beyond Burnout https://t.co/ouOLQAoCuz @thenamedicine @crisalvaradomd #lcsm #bcsm
Double Whammy @double_whammied
Re hormonal sensitivity and targets. Does progestin have extra significance for lobular? #BCSM
Social✽Fly @socflyny
@stales @double_whammied @oesterreichs @LobularBCA @jrgralow I'm there in spirit, but in actuality I'm in the hell that is Whole Foods 😁 ... Best Guests Ever! #bcsm
Dr. Deanna Attai @DrAttai
@ImmohMD @HillStirSci @jrgralow hello my friend! Glad you've popped into #bcsm tonight!
Dr. Kelly Shanahan @stage4kelly
Attention all smart science types! #bcsm
Mary O'Connor @MjoconorMary
@thecancergeek @SouthrnBeachGrl @double_whammied #bcsm A difficult choice but worth considering
Double Whammy @double_whammied
RT @DrAttai: @double_whammied #bcsm TEXT / SOFT had ~25% stop therapy due to side effects of hormone blockade. Any endocrine therapy can be…
Mighty Casey Quinlan @MightyCasey
RT @double_whammied: Re hormonal sensitivity and targets. Does progestin have extra significance for lobular? #BCSM https://t.co/YKkE4k8Vh7
Kala Menon, PhD MSCE @menon_kala
RT @jrgralow: PR is the most variable (and irreproducible) of the 3 main receptors we test for in breast cancer. We don’t think there is a…
Double Whammy @double_whammied
RT @stage4kelly: Attention all smart science types! #bcsm https://t.co/EMcWbsxRW2
Dennis Keim @denniskeim
@kathygori Hey, Kathy! There seems to be no end to these fires. :( #bcsm
Lobular Breast Cancer Alliance @LobularBCA
@LobularResearch Histology is not aways requested or collected in #ILC studies #bcsm That's a first step
Matthew J. Sikora @mjsikora
@double_whammied Need to leverage current to start. One issue is inconsistent methods for dx'ing ILC - gross histology vs Ecad/p120 stain. Not a lot of incentive to 'get it right' in the past, given lack of changes in rx. Need to figure it out, given loads of follow-up. #bcsm
Mighty Casey Quinlan @MightyCasey
RT @jrgralow: A definite maybe. Would discuss it for sure, but would factor in grade, amount of disease in the nodes, strength of Er/PR sta…
Double Whammy @double_whammied
RT @socflyny: @stales @double_whammied @oesterreichs @LobularBCA @jrgralow I'm there in spirit, but in actuality I'm in the hell that is Wh…
Mighty Casey Quinlan @MightyCasey
RT @ImmohMD: @HillStirSci @DrAttai @jrgralow Agree. It can be frustrating to not see a significant response of large lobular cancers to neo…
Hillary Stires, PhD @HillStirSci
@Rawpimple Similar ecad/p120 staining as well? Or just based off morphology? #BCSM
Dr. Rebecca B. Riggins @Prof_Riggins
@maggiemoo09 @mjsikora @jrgralow I wish we could! It’s something we’re working towards #bcsm
Julie Gralow @jrgralow
If e-Cadherin is present, would more accurately call a mixed ductal/lobular or ductal with lobular features. #bcsm
Dr. Deanna Attai @DrAttai
good question for @jrgralow and the researchers on the #bcsm chat tonight
Double Whammy @double_whammied
RT @jrgralow: A definite maybe. Would discuss it for sure, but would factor in grade, amount of disease in the nodes, strength of Er/PR sta…
IBC Research Fdn @IBCResearch
@itsthebunk Big hugs...we need to chat about #ReFresh sometime. Rest up ❤ #bcsm
Dr. Kelly Shanahan @stage4kelly
@kathygori I’m amazed at how much smoke is here in Tahoe. You must be getting a lot from the Mendocino complex fire, plus Redding. #WeNeedRain #bcsm
Dr. Hedrick @DrHedrick
@stales @double_whammied @oesterreichs @LobularBCA @jrgralow Sneaking in for one of my favorite factoids. Lobular Carcinoma in Situ is I think the first and possibly only "cancer" to be downgraded to "not cancer" However it carries a significant risk of true carcinoma (even ductal), so mastectomy may still be warranted. #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
RT @mjsikora: @DrAttai @Prof_Riggins @jrgralow Not there yet. We just don't have the data for pre-meno yet, and it may be that the endocrin…
Mighty Casey Quinlan @MightyCasey
RT @DrAttai: @double_whammied #bcsm TEXT / SOFT had ~25% stop therapy due to side effects of hormone blockade. Any endocrine therapy can be…
IBC Research Fdn @IBCResearch
RT @jrgralow: If e-Cadherin is present, would more accurately call a mixed ductal/lobular or ductal with lobular features. #bcsm https://t.…
Hillary Stires, PhD @HillStirSci
RT @oesterreichs: @stage4kelly @DrAttai @jrgralow #BCSM Lee/Oesterreich Lab is looking to hire a motivated postdoc interested in understand…
Neelima Denduluri @ndenduluri1
@double_whammied #bcsm SOFT and TEXT included lobular and ductal but there is no breakdown in manuscript on degree of improvement with ovarian suppression based on histologic subtype.
Alexis S @Lex_in_CO
@DrAttai @Prof_Riggins @mjsikora @jrgralow They considered me post meno in 2015 when new mets and switched to Ibrance and femara. But know early stage I might not have been so willing to race to menopause 🤷‍♀️ #bcsm
Steffi Oesterreich @oesterreichs
@LobularResearch #BCSM We absolutely need increased access to metastatic ILC tissue. Participation in the metastatic breast cancer project is encouraged https://t.co/77PWvMX4Bv
#Survivor3x ✌💚🕉🐾 @chigrl13
Yes, I'm lurking. #bcsm.
Mighty Casey Quinlan @MightyCasey
RT @DrHedrick: @stales @double_whammied @oesterreichs @LobularBCA @jrgralow Sneaking in for one of my favorite factoids. Lobular Carcinoma…
Jamie Holloway, PhD @jamienholloway
RT @oesterreichs: @LobularResearch #BCSM We absolutely need increased access to metastatic ILC tissue. Participation in the metastatic brea…
Double Whammy @double_whammied
RT @ndenduluri1: @double_whammied #bcsm SOFT and TEXT included lobular and ductal but there is no breakdown in manuscript on degree of impr…
#Survivor3x ✌💚🕉🐾 @chigrl13
RT @double_whammied: Yes, #LobularBC's #metastatic spread pattern can be very different too. This is very important for both PCPs and oncs…
Lobular Breast Cancer Alliance @LobularBCA
RT @oesterreichs: @LobularResearch #BCSM We absolutely need increased access to metastatic ILC tissue. Participation in the metastatic brea…
Dr. Deanna Attai @DrAttai
@DrHedrick @stales @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm good point - although glad LCIS not staged anymore as cancer. Now to change the name to lobular neoplasia. @JMGardnerMD any progress on this front?
Mighty Casey Quinlan @MightyCasey
RT @stage4kelly: @jrgralow Is there a difference in e cadhedrin in the ones that form lumps versus don’t? Could this potentially be a targ…
Alicia C. Staley @stales
@socflyny @double_whammied @oesterreichs @LobularBCA @jrgralow LOL. Great work multi-tasking. #BCSM
Mighty Casey Quinlan @MightyCasey
RT @mjsikora: @double_whammied Need to leverage current to start. One issue is inconsistent methods for dx'ing ILC - gross histology vs Eca…
Double Whammy @double_whammied
More info here about how #lobular patients can sign up for the @MBC_Project. #BCSM https://t.co/oojHzxaT1G
Mighty Casey Quinlan @MightyCasey
RT @DrAttai: @DrHedrick @stales @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm good point - although glad LCIS not staged anymo…
BuiltaLife @kim_builta
Hi from Texas. So much info here. Makes me want to go reread my path reports from 15 and 8 years ago #bcsm
Hillary Stires, PhD @HillStirSci
RT @oesterreichs: @LobularResearch #BCSM We absolutely need increased access to metastatic ILC tissue. Participation in the metastatic brea…
Mary O'Connor @MjoconorMary
@double_whammied #bcsm this is easier for premenopausal women over 45 but much more difficult before
Dr. Deanna Attai @DrAttai
@DrHedrick @stales @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm "regular" LCIS (not pleomorphic) better characterized as a marker of increased risk. High risk surveillance, tamoxifen / raloxifine / AI and consideration for bilateral mastectomy
Alicia C. Staley @stales
RT @DrAttai: @DrHedrick @stales @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm good point - although glad LCIS not staged anymo…
Mighty Casey Quinlan @MightyCasey
RT @oesterreichs: @LobularResearch #BCSM We absolutely need increased access to metastatic ILC tissue. Participation in the metastatic brea…
Double Whammy @double_whammied
RT @kim_builta: Hi from Texas. So much info here. Makes me want to go reread my path reports from 15 and 8 years ago #bcsm
Julie Gralow @jrgralow
Generally, cancers strongly positive for both ER and PR tend to have more endocrine sensitivity than those that are PR neg. But still plenty of responses even then. Weaker ER with PR negative would make me consider chemo more strongly (followed by endocrine) in early stage. #bcsm
Dennis Keim @denniskeim
RT @oesterreichs: @LobularResearch #BCSM We absolutely need increased access to metastatic ILC tissue. Participation in the metastatic brea…
Double Whammy @double_whammied
RT @jrgralow: Generally, cancers strongly positive for both ER and PR tend to have more endocrine sensitivity than those that are PR neg. B…
Mighty Casey Quinlan @MightyCasey
RT @ndenduluri1: @double_whammied #bcsm SOFT and TEXT included lobular and ductal but there is no breakdown in manuscript on degree of impr…
Steffi Oesterreich @oesterreichs
@mjsikora @double_whammied There is a large study ongoing comparing gross histology versus Ecad/p120. The data should be available later this year #BCSM
Alicia C. Staley @stales
T3 coming up #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
@smacdon932 @ndenduluri1 @double_whammied Yes, and I believe this is now being worked out, right @mjsikora? #bcsm
Dr. Kelly Shanahan @stage4kelly
@DrHedrick @stales @double_whammied @oesterreichs @LobularBCA @jrgralow And what about atypical lobular hyperplasia as a possible marker of potential invasive cancer in either breast at some nebulous time in he future? #SoManyQuestions #bcsm
Lobular Breast Cancer Alliance @LobularBCA
#lobular needs to be analyzed within existing large studies #bcsm
Double Whammy @double_whammied
RT @stales: @socflyny @double_whammied @oesterreichs @LobularBCA @jrgralow LOL. Great work multi-tasking. #BCSM
Mighty Casey Quinlan @MightyCasey
RT @jrgralow: Generally, cancers strongly positive for both ER and PR tend to have more endocrine sensitivity than those that are PR neg. B…
Matthew J. Sikora @mjsikora
RT @oesterreichs: @mjsikora @double_whammied There is a large study ongoing comparing gross histology versus Ecad/p120. The data should be…
Mighty Casey Quinlan @MightyCasey
RT @DrAttai: @DrHedrick @stales @double_whammied @oesterreichs @LobularBCA @jrgralow #bcsm "regular" LCIS (not pleomorphic) better characte…
Lobular Breast Cancer Alliance @LobularBCA
RT @oesterreichs: @mjsikora @double_whammied There is a large study ongoing comparing gross histology versus Ecad/p120. The data should be…
Mighty Casey Quinlan @MightyCasey
RT @double_whammied: More info here about how #lobular patients can sign up for the @MBC_Project. #BCSM https://t.co/oojHzxaT1G https://t…
Dennis Keim @denniskeim
RT @DrHedrick: @stales @double_whammied @oesterreichs @LobularBCA @jrgralow Sneaking in for one of my favorite factoids. Lobular Carcinoma…
Alicia C. Staley @stales
T3: Any new, promising research for Lobular Breast Cancer? #bcsm
Mary O'Connor @MjoconorMary
@double_whammied #bcsm live cell lines also needed?
Alicia C. Staley @stales
RT @LobularBCA #lobular needs to be analyzed within existing large studies #bcsm
Dr. Deanna Attai @DrAttai
#bcsm you stated it exactly. Atypical ductal and lobular hyperplasia as well as LCIS (lobular carcinoma in situ) markers of increased future cancer risk for ether breast
#Survivor3x ✌💚🕉🐾 @chigrl13
RT @double_whammied: More info here about how #lobular patients can sign up for the @MBC_Project. #BCSM https://t.co/oojHzxaT1G https://t…
Mighty Casey Quinlan @MightyCasey
RT @LobularBCA: #lobular needs to be analyzed within existing large studies #bcsm https://t.co/hbNEWtMsew
Iman Mohamed @ImmohMD
@DrAttai @HillStirSci @jrgralow Glad to be with you ! #Oncology #bcsm
Kate @kate_petrides
@ndenduluri1 @double_whammied I hope so! #bcsm
Mighty Casey Quinlan @MightyCasey
RT @stage4kelly: @DrHedrick @stales @double_whammied @oesterreichs @LobularBCA @jrgralow And what about atypical lobular hyperplasia as a p…
Dr. Kelly Shanahan @stage4kelly
Yes! Please sign up for the @MBC_Project especially if you are metastatic lobular! #bcsm
Alicia C. Staley @stales
@chigrl13 i see you! xoxo #bcsm
Julie Gralow @jrgralow
Right, new AJCC edition 8 staging makes LCIS no longer a cancer. But it still is associated with higher risk of future development of breast cancer (Both ductal and lobular) #bcsm
Double Whammy @double_whammied
What's the name of that study, @oesterreichs ? #BCSM
Santhosh Ambika @RenoHemonc
RT @HillStirSci: @LobularResearch Hopefully! So far they've found 18F-Fluciclovine may be better than standard imaging. Future studies will…
Alicia C. Staley @stales
--->>> Pass it on RT @stage4kelly Yes! Please sign up for the @MBC_Project especially if you are metastatic lobular! #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
This will be so welcomed #bcsm
Dr. Deanna Attai @DrAttai
#bcsm ADH, ALH, LCIS patients should be followed on "high risk" protocol - annual mammogram / MRI alternating 6 mo apart, 1-2x/yr clinical exam, consider for risk reduction with tamoxifen, raloxifine, aromatase inhibitor. Don't forget healthy lifestyle as well
Gary L. Thompson @garyleethompson
@LobularBCA Like so much of #cancer research, it appears that connecting researchers to patients to data to clinical knowledge in closer to real time is key hurdle. #bcsm is awesome at breaking down the silos. Need to go further!
Dennis Keim @denniskeim
RT @stales: --->>> Pass it on RT @stage4kelly Yes! Please sign up for the @MBC_Project especially if you are metastatic lobular! #bcsm
Dr. Hedrick @DrHedrick
@DrAttai @stales @double_whammied @oesterreichs @LobularBCA @jrgralow Yes! I think the most recent AJCC calls it lobular hyperplasia (not high risk) vs. lobular neoplasia (high risk) but it makes for a difficult conversation. Good that we discuss increased screening and risk reducing meds vs mastectomy. #bcsm
Hillary Stires, PhD @HillStirSci
@garyleethompson @LobularBCA Amen to that!!! #BCSM
Dr. Deanna Attai @DrAttai
#bcsm pleomorphic LCIS is a different beast - should be treated more like high grade DCIS
Double Whammy @double_whammied
This is excellent information, @DrAttai #BCSM @lobular
Kate @kate_petrides
@MjoconorMary @double_whammied I don’t have lobular but started ovarian suppression at 26 and continued for slightly over 5 years until my recent mets dx. It’s a difficult transition, but I found it manageable for what I hoped was small OS benefit. Even larger? Easier sell, IMO. #bcsm
Double Whammy @double_whammied
RT @garyleethompson: @LobularBCA Like so much of #cancer research, it appears that connecting researchers to patients to data to clinical k…
Alicia C. Staley @stales
RT @double_whammied: This is excellent information, @DrAttai #BCSM @lobular https://t.co/9qLI3DJuEq
Dr. Rebecca B. Riggins @Prof_Riggins
@stales @LobularBCA All of them #bcsm
Double Whammy @double_whammied
RT @DrHedrick: @DrAttai @stales @double_whammied @oesterreichs @LobularBCA @jrgralow Yes! I think the most recent AJCC calls it lobular hyp…
Julie Gralow @jrgralow
Yep, ALH (atypical lobular hyperplasia) as well as ADH (atypical ductal hyperplasia) when found on a biopsy are both associated with increased risk for future development of breast cancer - anywhere in either breast. #bcsm
Dennis Keim @denniskeim
RT @HillStirSci: @LobularResearch Hopefully! So far they've found 18F-Fluciclovine may be better than standard imaging. Future studies will…
Double Whammy @double_whammied
RT @DrAttai: #bcsm pleomorphic LCIS is a different beast - should be treated more like high grade DCIS
Dennis Keim @denniskeim
RT @LobularResearch: Is it unrealistic to create an ILC tissue bank to accelerate discoveries? Can the tissue collected by the MBCproject b…
Gary L. Thompson @garyleethompson
@tayl0rth0mps0n (home from @uva) and @KylaGThompson say hello... Trader Joe's Chinese for dinner after #bcsm https://t.co/0OmsQ8C3zc
Dennis Keim @denniskeim
RT @DrAttai: #bcsm do want to mention that some invasive lobular BC do present as a more traditional mass on imaging. Not common, but does…
Dr. Kelly Shanahan @stage4kelly
@DrAttai Any data on whether the presence of ALH may increase the risk of metastatic disease in those diagnosed with early-stage IDC? #Bcsm
Kathy Gori @kathygori
@stage4kelly Yep, had to go to the onc as I couldn’t catch my breath last week. had a tests, everything is okay but my bronchia were inflamed from the smoke so I got two different inhalators to use and an N95 mask. my mistake was doing about 5 miles a day in bad air .so no exercise. #bcsm
Dennis Keim @denniskeim
RT @jrgralow: Generally, cancers strongly positive for both ER and PR tend to have more endocrine sensitivity than those that are PR neg. B…
Stephanie Graff, MD, FACP @DrSGraff
RT @DrAttai: #bcsm ADH, ALH, LCIS patients should be followed on "high risk" protocol - annual mammogram / MRI alternating 6 mo apart, 1-2x…
Mia Spano-Curtiss & Sondra Price @BSBreastCancer
RT @malefitness: A case of a man with LBC: https://t.co/rRFEQLhnSG #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
@MjoconorMary @double_whammied Limited numbers of cell/tumor models is one of the biggest challenges any #lobular research lab faces #bcsm
Dr. Deanna Attai @DrAttai
@stage4kelly #bcsm not that I know of. Thought of as marker of increased risk for development of invasive breast CA, not necessarily development of mets
Adrian Lee @Adrianvlee
@DrHedrick @stales @double_whammied @oesterreichs @LobularBCA @jrgralow Reis-Filho and King doing great work in this area showing that "LCIS is a clonal neoplastic lesion, and provides additional evidence that at least some LCIS are non-obligate precursors of ILC" #BCSM https://t.co/vjCUbiGHtQ
Julie Gralow @jrgralow
Hmmm...not aware of any data suggesting this association. #bcsm https://t.co/EYhuYqLTJR
Iman Mohamed @ImmohMD
RT @DrAttai: #bcsm ADH, ALH, LCIS patients should be followed on "high risk" protocol - annual mammogram / MRI alternating 6 mo apart, 1-2x…
Frank Ingram, MD @Chucktowndoc
Ingram here. Community pathologist in NC. Been reading along. Hi! #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
RT @oesterreichs: @LobularResearch #BCSM We absolutely need increased access to metastatic ILC tissue. Participation in the metastatic brea…
patty spears @paspears88
Lots of great links shared tonight...learning so much about #lobularbreastcancer. Definitely feel like there is a lot to learn through more research in diagnosis, treatment and managing #LBC . Thank you @oesterreichs @jrgralow @Adrianvlee @double_whammied #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
RT @stales: --->>> Pass it on RT @stage4kelly Yes! Please sign up for the @MBC_Project especially if you are metastatic lobular! #bcsm
Julie Gralow @jrgralow
RT @Adrianvlee: @DrHedrick @stales @double_whammied @oesterreichs @LobularBCA @jrgralow Reis-Filho and King doing great work in this area s…
Dr. Deanna Attai @DrAttai
@Chucktowndoc #bcsm hello! great to have a pathologist on the chat!
Kathy Gori @kathygori
@stage4kelly We had Alan’s brother and his wife visiting from DC, so lots of outdoor activity and I heard they’re even getting smoke in Canada and the Midwest #bcsm
Steffi Oesterreich @oesterreichs
#BCSM T3 - research on ILC has been limited in the past at least in part due to limited availability of ILC models. We have made some recent progress, see: https://t.co/5DIbWgNzFv @mjsikora is doing excellent work in this area
Double Whammy @double_whammied
This #lobular #breast #ROLO trial looks pretty interesting. It's in the UK. https://t.co/oNVfGgkeuu #BCSM
Dr. Deanna Attai @DrAttai
@Chucktowndoc #bcsm feel free to chime in!
Alexis S @Lex_in_CO
RT @paspears88: Lots of great links shared tonight...learning so much about #lobularbreastcancer. Definitely feel like there is a lot to l…
Dennis Keim @denniskeim
RT @Prof_Riggins: @MjoconorMary @double_whammied Limited numbers of cell/tumor models is one of the biggest challenges any #lobular researc…
Matthew J. Sikora @mjsikora
@Prof_Riggins @MjoconorMary @double_whammied We also run in to the problem that published organoid or mouse models may get reported as ILC, only to be NOT lobular once we do the Ecad/p120. Goes back to dx issues for histo v staining. #bcsm
joey steward @jsteward2930
RT @DrAttai: #bcsm you stated it exactly. Atypical ductal and lobular hyperplasia as well as LCIS (lobular carcinoma in situ) markers of in…
Lobular Breast Cancer Alliance @LobularBCA
@stales Gelato Trial - a metastatic immunotherapy ILC trial in the Netherlands #bcsm https://t.co/ZKwWPIshfE
Double Whammy @double_whammied
Thank you for joining the discussion! #lobular definitely needs to get more exposure AND more research #BCSM
Dr. Rebecca B. Riggins @Prof_Riggins
RT @oesterreichs: #BCSM T3 - research on ILC has been limited in the past at least in part due to limited availability of ILC models. We ha…
Jay Peterson @Jpete008
RT @oesterreichs: #BCSM T3 - research on ILC has been limited in the past at least in part due to limited availability of ILC models. We ha…
Mary O'Connor @MjoconorMary
@Prof_Riggins @double_whammied #bcsm we must advocate and fund this!
#Survivor3x ✌💚🕉🐾 @chigrl13
RT @double_whammied: This is excellent information, @DrAttai #BCSM @lobular https://t.co/9qLI3DJuEq
Julie Gralow @jrgralow
As always, we need research and evidence to improve outcomes from (and treatments for) breast and all cancers! #bcsm https://t.co/W1pMEcxJsU
Dr. Kelly Shanahan @stage4kelly
@jrgralow I wonder if this is something else that the @MBC_Project should look at? @Nikhilwagle ? @corrie_painter ? #bcsm
The IBC Network Foundation @TalkIBC
RT @jrgralow: As always, we need research and evidence to improve outcomes from (and treatments for) breast and all cancers! #bcsm https:/…
Matthew J. Sikora @mjsikora
RT @oesterreichs: #BCSM T3 - research on ILC has been limited in the past at least in part due to limited availability of ILC models. We ha…
Steffi Oesterreich @oesterreichs
RT @Adrianvlee: Nice clinical review on ILC https://t.co/1M57BSLsnh #BCSM
Lobular Breast Cancer Alliance @LobularBCA
@stales PELOPS trial ILC Inclusive https://t.co/IbgNLwnfgU #bcsm #lobular
Alexis S @Lex_in_CO
RT @jrgralow: As always, we need research and evidence to improve outcomes from (and treatments for) breast and all cancers! #bcsm https:/…
Adrian Lee @Adrianvlee
RT @oesterreichs: #BCSM T3 - research on ILC has been limited in the past at least in part due to limited availability of ILC models. We ha…
Steffi Oesterreich @oesterreichs
RT @Adrianvlee: @DrHedrick @stales @double_whammied @oesterreichs @LobularBCA @jrgralow Reis-Filho and King doing great work in this area s…
Elizabeth Viggiano @EV11PDX
Also need non-RECIST eligibility criteria...ROLO and GELATO need RECIST; so many metastatic lobular are with our measurable lesions #bcsm
Dr. Susan Love @DrSusanLove
RT @DrAttai: #bcsm do want to mention that some invasive lobular BC do present as a more traditional mass on imaging. Not common, but does…
Double Whammy @double_whammied
Thank you to @oesterreichs @mjsikora @Prof_Riggins @jrgralow and so many others for the great #lobular work! #BCSM
Iman Mohamed @ImmohMD
@DrAttai Amen to that ! Surveillance and medications are important but a healthy life style (healthy weight, exercise and lower alcohol consumption) are just as important. #bcsm
Howard Karpoff @doctorkarpoff
RT @oesterreichs: #BCSM T3 - research on ILC has been limited in the past at least in part due to limited availability of ILC models. We ha…
Dr. Rebecca B. Riggins @Prof_Riggins
@mjsikora @MjoconorMary @double_whammied Yes! Ecad/p120 is the very first test for any new #lobular model #bcsm
Dennis Keim @denniskeim
RT @paspears88: Lots of great links shared tonight...learning so much about #lobularbreastcancer. Definitely feel like there is a lot to l…
Dr. Susan Love @DrSusanLove
RT @DrAttai: #bcsm for those who didn't see it, @double_whammied wrote a nice post about invasive lobular breast cancer, topic for tonight…
IBC Research Fdn @IBCResearch
RT @Adrianvlee: @double_whammied Our recent paper showing loss of E-cadherin (CDH1) in ILC results in increased growth factor (IGF) signali…
Double Whammy @double_whammied
RT @jrgralow: As always, we need research and evidence to improve outcomes from (and treatments for) breast and all cancers! #bcsm https:/…
Steffi Oesterreich @oesterreichs
RT @Adrianvlee: @double_whammied Our recent paper showing loss of E-cadherin (CDH1) in ILC results in increased growth factor (IGF) signali…
The IBC Network Foundation @TalkIBC
@double_whammied @oesterreichs @mjsikora @Prof_Riggins @jrgralow Agreed! I learned a lot and will share. #bcsm
Dennis Keim @denniskeim
RT @oesterreichs: #BCSM T3 - research on ILC has been limited in the past at least in part due to limited availability of ILC models. We ha…
Dr. Kelly Shanahan @stage4kelly
RT @double_whammied: Thank you to @oesterreichs @mjsikora @Prof_Riggins @jrgralow and so many others for the great #lobular work! #BCSM ht…
Lobular Breast Cancer Alliance @LobularBCA
@stales Endocrine Therapy Trials ILC specific - which is best for ILC? Super important trial #bcsm https://t.co/hb3ymSYd9Q
Double Whammy @double_whammied
More info about our fabulous #lobular #breastcancer researchers. #BCSM. https://t.co/gY4Bu5GEff
Matthew J. Sikora @mjsikora
RT @double_whammied: More info about our fabulous #lobular #breastcancer researchers. #BCSM. https://t.co/gY4Bu5GEff
flora migyanka @maggiemoo09
RT @double_whammied: This is excellent information, @DrAttai #BCSM @lobular https://t.co/9qLI3DJuEq
Fred Hutch @fredhutch
RT @jrgralow: As always, we need research and evidence to improve outcomes from (and treatments for) breast and all cancers! #bcsm https:/…
Mary O'Connor @MjoconorMary
@mjsikora @Prof_Riggins @double_whammied #bcsm is the cell type involved in lobular bc we’ll defined?
Julie Gralow @jrgralow
Not sure if these links with info on lobular have been shared yet tonight - from @breastcancerorg and @LivingBeyondBC https://t.co/okg1DUga69 https://t.co/V2suZpHjFY #bcsm
Double Whammy @double_whammied
Read more about @mjsikora's #lobular #breastcancer research here: https://t.co/QMgft06SKi #BCSM
Double Whammy @double_whammied
RT @jrgralow: Not sure if these links with info on lobular have been shared yet tonight - from @breastcancerorg and @LivingBeyondBC https:…
Lobular Breast Cancer Alliance @LobularBCA
Re-evaluate inclusion criteria for ILC metastatic trials #bcsm
Alicia C. Staley @stales
Wow - fast chat tonight! #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
RT @double_whammied: Read more about @mjsikora's #lobular #breastcancer research here: https://t.co/QMgft06SKi #BCSM
Double Whammy @double_whammied
Lots of links and info on #lobular #breastcancer at here: https://t.co/0jknBcf39P #BCSM
IBC Research Fdn @IBCResearch
RT @jrgralow: Not sure if these links with info on lobular have been shared yet tonight - from @breastcancerorg and @LivingBeyondBC https:…
The IBC Network Foundation @TalkIBC
RT @double_whammied: Lots of links and info on #lobular #breastcancer at here: https://t.co/0jknBcf39P #BCSM
Alicia C. Staley @stales
Only 5 minutes left.... Final thoughts for tonight? What have you learned? What will you share with you communities? #bcsm
Matthew J. Sikora @mjsikora
More detail about our #lobular work is at https://t.co/x8yl9ofMQX #bcsm
Alicia C. Staley @stales
RT @double_whammied Lots of links and info on #lobular #breastcancer at here: https://t.co/6pyxqfzMhX #BCSM
Dr. Rebecca B. Riggins @Prof_Riggins
RT @double_whammied: Lots of links and info on #lobular #breastcancer at here: https://t.co/0jknBcf39P #BCSM
Daniel Stover, MD @StoverLab
@double_whammied Another pre-surgery trial PELOPS, led by @Otto_DFCI. Kudos to those running trials focusing on #lobular. #bcsm https://t.co/XwyWZwRN4h
Gary L. Thompson @garyleethompson
@stales Yeah... that was a quick 60 minutes... lots of deep knowledge. The #lobmob team was super prepared!! Thank you. #bcsm
Alicia C. Staley @stales
------ please share ------ RT @mjsikora More detail about our #lobular work is at https://t.co/NvzNl7PAtT #bcsm
Lobular Breast Cancer Alliance @LobularBCA
@jrgralow @Breastcancerorg @LivingBeyondBC https://t.co/leLzt5mvu5 #bcsm
Dennis Keim @denniskeim
RT @mjsikora: More detail about our #lobular work is at https://t.co/x8yl9ofMQX #bcsm https://t.co/0R04TkZr6A
Mary O'Connor @MjoconorMary
@double_whammied @oesterreichs @mjsikora @Prof_Riggins @jrgralow #bcsm and so say all of us!
Alicia C. Staley @stales
RT @LobularBCA @jrgralow @Breastcancerorg @LivingBeyondBC https://t.co/YGQ3AUK7pz #bcsm
Dennis Keim @denniskeim
RT @double_whammied: Lots of links and info on #lobular #breastcancer at here: https://t.co/0jknBcf39P #BCSM
Double Whammy @double_whammied
There's also a big #lobular #breastcancer focus at the #NWMBC18 conf coming up in October. More info here: https://t.co/foX4XfMwtw #BCSM
Dr. Rebecca B. Riggins @Prof_Riggins
RT @mjsikora: More detail about our #lobular work is at https://t.co/x8yl9ofMQX #bcsm https://t.co/0R04TkZr6A
Neelima Denduluri @ndenduluri1
@jrgralow #bcsm With that degree of nodal burden, hard to omit chemo with current data- the large adjuvant trials looking at genomic profiling allowed up to 3 nodes.
Alicia C. Staley @stales
The #LobMob is legit! thanks for sharing so much with #BCSM tonight
Matthew J. Sikora @mjsikora
@MjoconorMary @Prof_Riggins @double_whammied #bcsm No, it's not. The name 'lobular' implies that it comes from the mammary gland lobules, rather than the ducts, but it's only called that as a historical artifact of its first identification.
Jamie Holloway, PhD @jamienholloway
Final thoughts: Super important for lobular patients to participate in clinical research so we have more data to help pts make better treatment decisions #bcsm
Dr. Kelly Shanahan @stage4kelly
#bcsm thank you to all for the opportunity to learn about lobular bc
Steffi Oesterreich @oesterreichs
#BCSM Read more about our ongoing trial here https://t.co/0Rda75BGrm
Double Whammy @double_whammied
Woo hoo! We're legit! #LOBMOB #LOBULAR #BREASTCANCER Thank you so much for hosting us #BCSM!
Alicia C. Staley @stales
RT @double_whammied big #lobular #breastcancer focus at the #NWMBC18 conf in October. https://t.co/7UpjTx8OiR #BCSM
Dennis Keim @denniskeim
Wow! What an informative hour! Thanks for everyone who participated. I learned a lot. Have a super week! #bcsm
Julie Gralow @jrgralow
Great work @lobularbca and @bcsmchat #bcsm
Lobular Breast Cancer Alliance @LobularBCA
@stales Thank you for hosting #lobmob #lobular #bcsm! We are just getting started!
Dr. Kelly Shanahan @stage4kelly
I’ll be there! I’m looking forward to learning more about lobular. #bcsm
Dr Samer Al-Bothaigi @SalemSamer
RT @jrgralow: As always, we need research and evidence to improve outcomes from (and treatments for) breast and all cancers! #bcsm https:/…
Double Whammy @double_whammied
RT @StoverLab: @double_whammied Another pre-surgery trial PELOPS, led by @Otto_DFCI. Kudos to those running trials focusing on #lobular. #b
Double Whammy @double_whammied
RT @stage4kelly: I’ll be there! I’m looking forward to learning more about lobular. #bcsm https://t.co/kMkRNmjvMN
Matthew J. Sikora @mjsikora
RT @oesterreichs: #BCSM Read more about our ongoing trial here https://t.co/0Rda75BGrm https://t.co/IUDnRFmKqB
Double Whammy @double_whammied
RT @jamienholloway: Final thoughts: Super important for lobular patients to participate in clinical research so we have more data to help p…
Neelima Denduluri @ndenduluri1
RT @jamienholloway: Final thoughts: Super important for lobular patients to participate in clinical research so we have more data to help p…
Dr. Rebecca B. Riggins @Prof_Riggins
This x100 #bcsm
Double Whammy @double_whammied
RT @Prof_Riggins: This x100 #bcsm https://t.co/DHmHKlLpKM
Dr. Kelly Shanahan @stage4kelly
What she said! I pine for the day when every patient is offered the opportunity to participate in a clinical trial, and that logistics to not preclude most of us from doing so.#bcsm
Daniel Stover, MD @StoverLab
@ndenduluri1 @double_whammied @jrgralow As you pointed out about SOFT/TEXT & little data regarding subsets of large clinical trials...there has also been no report of lobular vs. ductal in TAILORx, which could guide chemo benefit #bcsm
Dr. Deanna Attai @DrAttai
#bcsm thanks @double_whammied @jrgralow @stales for a great chat
Mighty Casey Quinlan @MightyCasey
RT @stage4kelly: What she said! I pine for the day when every patient is offered the opportunity to participate in a clinical trial, and th…
Double Whammy @double_whammied
Thank you so much to our #lobular researchers and clinicians for joining us for our first #lobular tweetchat tonight. #BCSM #FUcancer
Mighty Casey Quinlan @MightyCasey
RT @jamienholloway: Final thoughts: Super important for lobular patients to participate in clinical research so we have more data to help p…
Alicia C. Staley @stales
Thank you very much for being on tonight's chat: @double_whammied @oesterreichs @LobularBCA @jrgralow We learned so much! #bcsm
Mary O'Connor @MjoconorMary
@mjsikora @Prof_Riggins @double_whammied #bcsm this really needs to be pinned down seems basic!
Double Whammy @double_whammied
RT @DrAttai: #bcsm thanks @double_whammied @jrgralow @stales for a great chat
Lobular Breast Cancer Alliance @LobularBCA
Important endocrine therapy trial for #lobular #bcsm Multicenter -
Dr. Rebecca B. Riggins @Prof_Riggins
And I say this with sensitivity to the issues brought up earlier re. RECIST #bcsm
Double Whammy @double_whammied
RT @StoverLab: @ndenduluri1 @double_whammied @jrgralow As you pointed out about SOFT/TEXT & little data regarding subsets of large clinical…
TwitLiveEvents @TwitLiveEvents
August 13, 2018 at 10:00PM Twitter Chat - #BCSM #TwitterChat Visit https://t.co/IrsjE1hjIO for more events.
IBC Research Fdn @IBCResearch
Yeah, what she said! Lots of great info. Thanks everyone & have a great week!! #bcsm
علي سمكري @Dr_SamkariAli
RT @DrAttai: #bcsm ADH, ALH, LCIS patients should be followed on "high risk" protocol - annual mammogram / MRI alternating 6 mo apart, 1-2x…
Double Whammy @double_whammied
RT @stales: Thank you very much for being on tonight's chat: @double_whammied @oesterreichs @LobularBCA @jrgralow We learned so much! #bcsm
علي سمكري @Dr_SamkariAli
RT @DrAttai: #bcsm pleomorphic LCIS is a different beast - should be treated more like high grade DCIS
Double Whammy @double_whammied
RT @denniskeim: Wow! What an informative hour! Thanks for everyone who participated. I learned a lot. Have a super week! #bcsm
Dennis Keim @denniskeim
RT @jamienholloway: Final thoughts: Super important for lobular patients to participate in clinical research so we have more data to help p…
Alicia C. Staley @stales
@IBCResearch Thanks for joining in! #bcsm
Double Whammy @double_whammied
RT @oesterreichs: #BCSM Read more about our ongoing trial here https://t.co/0Rda75BGrm https://t.co/IUDnRFmKqB
Dennis Keim @denniskeim
RT @stales: The #LobMob is legit! thanks for sharing so much with #BCSM tonight