#ChatMS Transcript
Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Must Stop MS! @MustStopMS Happy Monday everyone! Who's joining us for #ChatMS??? Starting right now!! |
 | TruthBeTold @truthbetoldms @MustStopMS #chatms I'm here, Hi eveyone. |
| Must Stop MS! @MustStopMS @truthbetoldms Hi Marie! #ChatMS |
| Must Stop MS! @MustStopMS What was the best part of your weekend everyone? #ChatMS |
 | iConquerMS @iConquerMS @MustStopMS Time to #ChatMS! |
| Must Stop MS! @MustStopMS @luansills welll...of course! #ChatMS |
| Must Stop MS! @MustStopMS @luansills You even got well with 3 L's....#ChatMS |
| Must Stop MS! @MustStopMS RT @iConquerMS: @MustStopMS Time to #ChatMS! |
| Must Stop MS! @MustStopMS @aldoblahblah Sweet! #ChatMS |
 | Salvatore @bulldog92711 Hello everyone! #ChatMS |
| Must Stop MS! @MustStopMS @aldoblahblah gaming? #ChatMS |
| TruthBeTold @truthbetoldms @MustStopMS #chatms Its a long weekend here in Canada so I am going to say this is the best part of my weekend. So cold and too much snow. |
| Must Stop MS! @MustStopMS @bulldog92711 Hi there! #ChatMS |
| Must Stop MS! @MustStopMS This week's topic is spasticity. Muscle spasms affect many with MS and at different severities. Question 1 coming right up! #ChatMS |
 | YouViewIt (🕸Y💀uB🎃🎃It🕸) 38 MS @YouViewIt38 @MustStopMS #ChatMS Present!!! What's the topic? Is this being graded? I didn't study, LOL |
| Must Stop MS! @MustStopMS Q1 – Spasticity can occur in many different severities. It could be tiny muscle twitches or can be extremely painful where muscles tighten and won’t let go. Have you experienced any form on Spasticity? #ChatMS |
 | John Yellowcard @jyellowcard @MustStopMS Hanging out with friends and a Cuban dinner. #chatms |
| YouViewIt (🕸Y💀uB🎃🎃It🕸) 38 MS @YouViewIt38 @luansills @MustStopMS YES, I didn't study either, so I can't copy off of U...#ChatMS |
| Must Stop MS! @MustStopMS @YouViewIt38 @luansills No Cheating!!! #ChatMS |
| John Yellowcard @jyellowcard @MustStopMS A1: In my left leg mostly. #chatms |
 | Lucky Mendez @rmendez1 RT @MustStopMS: What was the best part of your weekend everyone? #ChatMS |
| iConquerMS @iConquerMS @MustStopMS A1 - I have had some form of spasticity since 2013. At best my legs are just still but at their worst I can hardly walk and it feels like my muscle are going to tare #ChatMS |
| TruthBeTold @truthbetoldms @MustStopMS #chatms A1. I often get foot cramps. My toes crunch and bend. Recently, Ive found if I push myself too had. My leg will cramp and it just won't work. |
| Must Stop MS! @MustStopMS A1 - I've gotten mostly little twitches, but have had some pretty severe leg cramps on occasion. #ChatMS |
 | MS Avenger ♿ @theMSAvenger @MustStopMS A1 - OMFG YES!!! Sometimes I think I'd rather die. I was considered for an internal muscle relaxer pump, but I have #MS lesions on my spine, so I'm not a good candidate. The tiny twitches are annoying but aren't painful. I'd take those any day! #ChatMS |
| Salvatore @bulldog92711 Q1- my left foot decided to dance through the night limiting my sleep 🤦♂️#ChatMS |
 | Jennie Narraway @jennarraway @MustStopMS Q1: Absolutely! In my legs primarily. It’s one of my ‘biggest’ symptoms. #ChatMS |
| iConquerMS @iConquerMS @jyellowcard @MustStopMS My left leg is much worse than my right. I try to stretch it more/longer than my right but even still, it's always so tight #ChatMS |
| Must Stop MS! @MustStopMS Q2 – How would you describe the spasticity you experience? On a scale of 1-10, how would you rate the severity? #ChatMS |
 | Aleyna @AleynaMoreHuman A1: yes! In my legs, in my back, in one of my arms. #ChatMS |
 | Miss to Mrs. to MS @MisstoMrstoMS @MustStopMS A1 - The dreaded MS hug has haunted me from time to time - the tightening of all the tiny muscles between your ribs. Talk about unpleasant 😩🥴 #ChatMS |
| Jennie Narraway @jennarraway @MustStopMS Q2: It can range from a 1-9, depending on what DMT I’m on, the weather, activity level, stress and or/tiredness. #ChatMS |
| Aleyna @AleynaMoreHuman A2: It's almost impossible to rate the severity. It varies from day to day. It depends on how active I've been, and what drugs I've taken. #ChatMS |
| MS Avenger ♿ @theMSAvenger @MustStopMS The leg ones are no fun! So sorry to hear that! My current spasm is right here on my foot, always this foot. Hurts like 🤬! #ChatMS https://t.co/nWnRGYtK9h |
| iConquerMS @iConquerMS @MustStopMS Like I have stiff action figure legs that only bend very mechanically in certain joints. #ChatMS |
 | Box lunch & coconut wata 🇯🇲 @TanyaMarie_P #ChatMS. Yes the stiff leg its annoying A1 |
| Miss to Mrs. to MS @MisstoMrstoMS @MustStopMS A2 - Twitches are manageable, though annoying when it's around my eyes but at worst only a 2 or 3. The back/ribs spasms though can catch me with anything from a 3 to a solid 10. #ChatMS |
| John Yellowcard @jyellowcard @MustStopMS A2: It is not exactly what the questioned asked, my soles are numb or at least feel like they have a few layers of cardboard. #chatms |
| Must Stop MS! @MustStopMS Q3 – How often do you experience muscle spasms? Is it a daily thing? #ChatMS |
| TruthBeTold @truthbetoldms @MustStopMS #chatms A. 2 The pain is brutal, Naturally I can't make the effected area move at all. Ive tried to stretch it out but with my feet it needs to pass, with my legs I need to rest. It seems to happen more on the right side. Even when I had optic neuriltis it was my right eye. |
| Aleyna @AleynaMoreHuman A3: Yes, recently it is every single day. #ChatMS |
| Must Stop MS! @MustStopMS @aldoblahblah A lot of times spasms seem to happen more at night. #ChatMS |
| Salvatore @bulldog92711 @MustStopMS Q2 - varies as well, too much activity but the weather kills me the most, IMO the atmospheric pressure change is the culprit but the doctor looks at me like I have 6 heads when I tell him #ChatMS |
| iConquerMS @iConquerMS @MustStopMS Spasms? Probably only 2-3 times a week and usually at night while trying to fall asleep. #ChatMS |
| TruthBeTold @truthbetoldms @MustStopMS #chatms A3. No, it a sporadic thing. |
| Must Stop MS! @MustStopMS Q4 is up next! #ChatMS https://t.co/QlJEcsn8ZP |
| Must Stop MS! @MustStopMS Q4 – Do the muscle spasms generally occur in the same area? Where? #ChatMS |
| Jennie Narraway @jennarraway @MustStopMS A3: Daily but worse at night and if physically inactive for more than an hour. #ChatMS |
| TruthBeTold @truthbetoldms @MustStopMS @aldoblahblah #chatms Noticing a lot of people saying they experience cramps more at night. Makes sense if we have tired ourselves out. |
| Jennie Narraway @jennarraway @MustStopMS A4: Yes. Lower legs, mid to lower back. #ChatMS |
| Salvatore @bulldog92711 @MustStopMS Q4 - typically left leg and or foot cramps !#ChatMS |
| Aleyna @AleynaMoreHuman This! The weather really messes up all of my symptoms, but doctors act like I'm crazy if I say that. #ChatMS |
| Lucky Mendez @rmendez1 RT @MustStopMS: Q3 – How often do you experience muscle spasms? Is it a daily thing? #ChatMS |
| Jennie Narraway @jennarraway @MustStopMS Hahaha! Looks so familiar! #ChatMS |
| TruthBeTold @truthbetoldms @Aleynamorehuman #chatms I agree the weather. Hot aznd Cold effects my mobility. |
| Must Stop MS! @MustStopMS Here comes Q5! #ChatMS https://t.co/tadRcq3GnO |
| Must Stop MS! @MustStopMS Q5 – We had a separate #ChatMS topic on this before, but have you ever had your rib muscles spams….aka the MS Hug? #ChatMS |
| Miss to Mrs. to MS @MisstoMrstoMS @MustStopMS A3 - Depends on the day - if I stay on top of my baclofen routine I usually don't have issues, but too much exercise (or not enough) can bring on additional spasms despite the medication. #ChatMS |
| Miss to Mrs. to MS @MisstoMrstoMS @MustStopMS A4 - 90% of the time the spasms are in my back, but eye twitching can also be a thing. #ChatMS |
| Jennie Narraway @jennarraway @MustStopMS Yikes! This is like Alien but in someone’s leg. #ChatMS |
| Aleyna @AleynaMoreHuman A5: yes, it's brutal. Makes it hard to breathe. #ChatMS |
| Miss to Mrs. to MS @MisstoMrstoMS @MustStopMS A5 - THE WORST. It is as uncomfortable as everyone says - thank all of the holy and spiritual beings for whoever invented baclofen #ChatMS https://t.co/VPLNAmDxXu |
| Jennie Narraway @jennarraway @MustStopMS A5: I had the MS hug once last year and honestly thought it would never end and would lose my mind from the pain. Couldn’t even speak. Scared the heck out of my kid! #ChatMS |
| iConquerMS @iConquerMS @MustStopMS A5 - I used to get "the MS hug" quite often, it was the worst! #ChatMS |
| Must Stop MS! @MustStopMS @aldoblahblah haha! #ChatMS |
| Salvatore @bulldog92711 @MustStopMS Q-5 I experienced the hug when I first was diagnosed, my feet went numb and my legs over a period of 2 months. Thought I pinched a nerve. It was until my stomach went numb did I think something was wrong🤦♂️ I know I’m stubborn 😂#ChatMS |
| Must Stop MS! @MustStopMS Question 6 right after this! #ChatMS https://t.co/eFP1NJwuCJ |
| Must Stop MS! @MustStopMS Q6 – Are there certain times of day or after certain events where your spasticity is worse than at other times? #ChatMS |
| Must Stop MS! @MustStopMS A1 - some have answered this already (night time), but I experience it more on lack of sleep or stress too #ChatMS |
| Jennie Narraway @jennarraway @MustStopMS A6: At night it’s the worst, followed in severity by when I’m not moving much (like sitting at a movie, etc). #ChatMs |
| Must Stop MS! @MustStopMS @bulldog92711 I called when my stomach went numb too. Mine started around my tailbone though. #ChatMS |
| TruthBeTold @truthbetoldms @MustStopMS #chatms Yes, if I have been standing for more than 10 mintes or wearing something higher than flat shoes |
| iConquerMS @iConquerMS @MustStopMS A6 - Cold weather and stress make my legs tighten up. Trying not fall asleep is when I seem to get my spasms most often. #ChatMS |
 | christian . @dearest_monster @MustStopMS A5 #chatMS yes, it is absolutely horrible |
| YouViewIt (🕸Y💀uB🎃🎃It🕸) 38 MS @YouViewIt38 @MustStopMS @makkydoll #ChatMS ALL the time!!! Flex UR toes upwards when it happens, sometimes helps loosen the muscles!! |
 | Felisha “the knife in the kidney” 🪴 @felish_a Most of my spasticity is in my left thigh/knee region and around my waist. #ChatMS |
 | DawnFL59 🌊 @DawnFoss28 @MustStopMS A6 #ChatMS At night when I’m trying to sleep, or when I’ve been walking or on my feet for more than a few minutes. |
| Miss to Mrs. to MS @MisstoMrstoMS @luansills @MustStopMS What? You mean you don't immediately rush to enjoy an afternoon of overbearing electronic thumping noises in a tiny contained tube as soon as you're told to?! 😂 If it makes you feel better I'm still getting them and my MRIs have been totally fine lately 🤷♀️Go figure. #ChatMS |
| Must Stop MS! @MustStopMS On our way to question 7... #ChatMS https://t.co/BckwoJFn4K |
| Felisha “the knife in the kidney” 🪴 @felish_a It feels like a very tight muscle like if you were lifting a weight at the gym and then just forgot to let go. Severity ranges quite a bit, a day can be from maybe a 3 to a 7? #ChatMS |
| Miss to Mrs. to MS @MisstoMrstoMS @MustStopMS Absolutely triggers for me as well! #ChatMS |
| DawnFL59 🌊 @DawnFoss28 @MustStopMS A4 #ChatMS. Yes. Lower legs and feet, more often the right side, and mid back. |
| Felisha “the knife in the kidney” 🪴 @felish_a All day every damn day! I would say it’s my most debilitating symptom. #ChatMS |
| MS Avenger ♿ @theMSAvenger @MustStopMS A6- Night time. #ChatMS |
| Salvatore @bulldog92711 @MustStopMS Q6 - night time is the worse, if I have too much activity I feel the pain. #ChatMS |
| christian . @dearest_monster @MustStopMS A2 #chatMS 6, 7? It's just weird to put it on a scale |
| Must Stop MS! @MustStopMS FYI - there aren't that many good gifs for cramps haha #ChatMS |
| Miss to Mrs. to MS @MisstoMrstoMS @MustStopMS A6 - The worst is when I've been sitting too much (lots of driving/long work days) or if I overdo a workout I tend to pay for it for a day or 2 after w/ the hug. I've found Pilates has been the best tool to keep spasticity away for me personally #ChatMS https://t.co/Iz9xOANhYY |
| DawnFL59 🌊 @DawnFoss28 @MustStopMS A3 #ChatMS. Every. Darned. Day. Also Every. Darned. Night. Ugh! |
| iConquerMS @iConquerMS @luansills @MustStopMS Well when I'm sleeping I am never that cold, I actually run really hot. I am talking like 30 degrees in the snow haha #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a Yup! But mine is around my belly button area. And it’s always there too in various intensities. If my leg feels bad so does the hug and vice versa #ChatMS |
| Must Stop MS! @MustStopMS Q7 – Do you take medication or have you found anything that helps lessen the frequency or severity of your muscle spasms? #ChatMS |
| iConquerMS @iConquerMS @karashlan7 @MustStopMS I start feeling like Gumbie because my feet start to drag as a result of me not being able to bend my knees #ChatMS |
| TruthBeTold @truthbetoldms @MustStopMS #chatms I was taught a yoga technique. Rub your foot over a golf ball to relax the foot. It does make a difference, But like most things I forget to be consistent. |
| Jennie Narraway @jennarraway @MustStopMS A7: No meds. Stretching, exercising help the most. When all else fails and it’s out of control, sleep (if possible). #ChatMS |
| DawnFL59 🌊 @DawnFoss28 @MustStopMS A2 #ChatMS. Most days it’s probably a 6-7. A bad day, or during a flare up it is closer to a 9-10. |
| Felisha “the knife in the kidney” 🪴 @felish_a Cold weather, right after waking up, sitting for too long, basically anything 🙃 it was really fun when touch would really trigger it. You realize ppl want to pay your legs a lot lol #ChatMS |
| Jennie Narraway @jennarraway @Fdemyelination @MustStopMS That’s amazing! I’m so glad for you. What a relief that must be. #ChatMS |
| iConquerMS @iConquerMS @MustStopMS A7 - Medication never helped me. Only thing that helps is stretching and I only KNOW it helps because my function gets better but they still FEEL tight #ChatMS |
| MS Avenger ♿ @theMSAvenger @luansills @iConquerMS @MustStopMS I am just learning about this burning foot thing. What a load of f*ckery!!! #ChatMS https://t.co/NpiMA874uJ |
 | Mal 'Pram' Kiely @lancelotspram @MustStopMS #ChatMS I get the occasional "twitchies" in my legs, usually as I go to lay down to sleep. i get the occasional hand shakes as well. Random! || https://t.co/hqf47HV0zC || |
| Mal 'Pram' Kiely @lancelotspram @MustStopMS #ChatMS It's the whole randomness of it that is so frustrating for me. |
| Jennie Narraway @jennarraway @karashlan7 @MustStopMS Good luck, Kara! I hope it goes well for you. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a Tizanidine as a muscle relaxer. Medical cannabis helps too- both smoking and topicals. Exercise/stretching/yoga. Cupping helps a LOT! #ChatMS |
 | #LupusChat @Lupus_Chat Hey #MultipleSclerosis fam! @MustStopMS is having their tweetchat tonight as well. They’re discussing muscle spasms, join the conversation using the hashtag: #ChatMS ⬇️⬇️⬇️ |
| DawnFL59 🌊 @DawnFoss28 @MustStopMS A1 #ChatMS Yes! Anywhere from the tiny twitches to waking up in such pain that it took me a few minutes to figure out what was happening. |
| Mal 'Pram' Kiely @lancelotspram @MustStopMS ##ChatMS In my calves, mainly. |
 | Tiffany ⁷ @TiffanyAndLupus RT @MustStopMS: Tonight’s #ChatMS is about spasticity. You know...when those muscles start going rogue and tightening for no reason. Do you experience this? Let’s talk about it tonight at 7pm EST! https://t.co/7MqCQqzbq6 |
| Aleyna @AleynaMoreHuman A7: Baclofen helps, but makes me dizzy and extremely tired. Tizanadine makes me less tired and not dizzy, but it's not very effective (compared to Baclofen.). Marijuana (with THC) is the best, but it is federally illegal. #ChatMS |
| Must Stop MS! @MustStopMS RT @Lupus_Chat: Hey #MultipleSclerosis fam! @MustStopMS is having their tweetchat tonight as well. They’re discussing muscle spasms, join the conversation using the hashtag: #ChatMS ⬇️⬇️⬇️ |
 | ☆R͓̽a͓̽c͓̽h͓̽a͓̽e͓̽l͓̽☆ @Luvgirl101 @MustStopMS A5 - yes. 😖 They're awful & if someone has recommendations on how to shorten or alleviate them when they hit, I'm all ears. #ChatMS |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Hey #MultipleSclerosis fam! @MustStopMS is having their tweetchat tonight as well. They’re discussing muscle spasms, join the conversation using the hashtag: #ChatMS ⬇️⬇️⬇️ |
| Mal 'Pram' Kiely @lancelotspram @MustStopMS #ChatMS I know that after a good walk, my legs may get leg cramps or 'twitchies' later on that night... but not always! Very random! |
| Must Stop MS! @MustStopMS @felish_a Guess what??? I got a coupon in the mail today for a free accupunture consultation haha #ChatMS |
 | Kevin A @Big_in_VA @MustStopMS A1 - yes I have on a random basis #CHatMS |
| MS Avenger ♿ @theMSAvenger @aldoblahblah @MustStopMS I have a 6 pack! It's just hidden in an ice chest. Perhaps that's why the #MShug - everyone appreciates a nice cold one! 😂🤣 Gotta laugh so I don't cry! #ChatMS |
| Mal 'Pram' Kiely @lancelotspram @MustStopMS #ChatMS I just kinda roll with it, as my 'twitchies' usually pass relatively quickly, usually before it'd take the time for a pill etc to take effect. Catch-22. |
| Kevin A @Big_in_VA @MustStopMS A2 - I think a 3 at its worst. #ChatMS |
| Miss to Mrs. to MS @MisstoMrstoMS @MustStopMS A7 - Moderate exercise, lots of stretching, but most of all the magical combination of baclofen and regular Pilates! #ChatMS |
| DawnFL59 🌊 @DawnFoss28 @MustStopMS A7 #ChatMS I used to take Baclofen, but have recently been able to go off almost all meds. I find that medical CBD oil and marijuana work much better for me for most of my symptoms. I tried it at the urging of my neurologist and primary doc. I’m so glad I did. |
| Jennie Narraway @jennarraway @lancelotspram @MustStopMS I feel that! Often I can’t trace why or when something is happening. I guess it’s the nature of the disease. 😬 #ChatMS |
| Must Stop MS! @MustStopMS Q8 will not be late! (Corny rhyme attempt. I’m sorry) #ChatMS https://t.co/bdmMu7UpJA |
| Must Stop MS! @MustStopMS Q8 – Have you discussed the spasticity with your neurologist? What did they say? #ChatMS |
| iConquerMS @iConquerMS @luansills @Fdemyelination @MustStopMS oh no! Hopefully there is nothing new to see... #ChatMS |
| Kevin A @Big_in_VA @MustStopMS A3 - maybe once a week so not often. #ChatMS |
| christian . @dearest_monster @MustStopMS A3 #chatMS daily, feeling forever cramped |
| Must Stop MS! @MustStopMS @luansills @felish_a I saved the coupon haha. I really should check it out. I'm so curious as you all know. #ChatMS |
| MS Avenger ♿ @theMSAvenger @MustStopMS A7 - I guess I'm in the minority! I do take muscle relaxers when needed and about to try CBD now that my state has medical dispensaries. I also use heat/ice/aspercreme/massage. *I was injured in the military, so it's not just MS, I've got other muscle issues too. #ChatMS |
| Jennie Narraway @jennarraway @MustStopMS A8: Said it was typical of the disease & to exercise, avoid stress, rest when needed. #ChatMS |
| christian . @dearest_monster @MustStopMS A4 #chatMS back of the thigh to the toes |
| iConquerMS @iConquerMS @MustStopMS A8 - "Try massage therapy" #ChatMS |
 | Eric Christensen @madmacdad @MustStopMS Intrathecal Baclofen pump with 270mcg dosage. Stopped upper MS hug but developed new spasms more like lower abdomen muscles tightening and locking all day. #ChatMS |
| Must Stop MS! @MustStopMS @dearest_monster the severe spasms I've had were in back of thigh. ugh #ChatMS |
 | Cache Walker @CacheWalker @felish_a Tiz + foam roller for me! #ChatMS |
| Must Stop MS! @MustStopMS @luansills #TubeOfDoom #ChatMS |
| Aleyna @AleynaMoreHuman A8: He usually just prescribes more drugs. He also has recommended stretching, and massage. #ChatMS |
| TruthBeTold @truthbetoldms @MustStopMS #chatms I have discussed it. They prescribe lorezepam. Which is an anti anxiety pill and makes me sleepy |
| Kevin A @Big_in_VA @MustStopMS A4 - yes they do in my left leg and the left side of my face. #ChatMS |
| Kevin A @Big_in_VA @MustStopMS A5 - thankfully no #ChatMS |
| christian . @dearest_monster @MustStopMS A7 #chatMS no meds, stretch if I need to, which should be all the time but I never do 😭 |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A7 yes CBD oil helps greatly. Baclofen also I just don't like the tired feeling it gives me #chatms |
| Must Stop MS! @MustStopMS Last question of the night... #ChatMS https://t.co/CN5JuCUuDg |
| Mal 'Pram' Kiely @lancelotspram @MustStopMS A5 #ChatMS Only when my MS first came on... after a course of IV steroids in hospital, I haven't experienced them since, thankfully. |
| Miss to Mrs. to MS @MisstoMrstoMS @MustStopMS A8 - That's where baclofen came in and I am sooooo thankful for that option. #ChatMS https://t.co/rtPWaT4OVa |
| Must Stop MS! @MustStopMS Q9 – What tips or advice could you offer to others living with MS that may be struggling with muscle spasms? #ChatMS |
| Kevin A @Big_in_VA @MustStopMS A6 - not that I can correlate to in my mind. #ChatMS |
| TruthBeTold @truthbetoldms @Aleynamorehuman #chatms It sounds like the doctors are using the shampoo method. Use, rinse, repeat. As in get the cramp, stretch, cramp, stretch some more. |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A6 not so much a time but when I'm tired and In the cold it horrible #chatms |
| Eric Christensen @madmacdad @MustStopMS Abdomen and legs. #ChatMS |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A5 yes the 1st time I thought I was having a heart attack. #chatms |
| Kevin A @Big_in_VA @MustStopMS A7 - no I haven’t #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a Oh yes, it’s the symptom that messes everything else up like balance, walking etc. over time it has very very slowly gotten better from where it was but still v bothersome. I think I want to pursue Botox shots next. Maybe. #ChatMS |
| TruthBeTold @truthbetoldms @MustStopMS #chatms hard to say. We all have M.S. but severity and frequency is so different |
| Jennie Narraway @jennarraway @MustStopMS A9: Keep track of triggers and discuss if you need meds with your neurologist. Exercise/stretch. Increase fluid intake is possible. #ChatMS |
| Aleyna @AleynaMoreHuman Yes, the barometric pressure is a killer! #ChatMS |
| Must Stop MS! @MustStopMS RT @truthbetoldms: @MustStopMS #chatms hard to say. We all have M.S. but severity and frequency is so different |
| Must Stop MS! @MustStopMS RT @jennarraway: @MustStopMS A9: @MustStopMS A9: Keep track of triggers and discuss if you need meds with your neurologist. Exercise/stretch. Increase fluid intake is possible. #ChatMS |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A4. Predominantly my left leg but every so often a full body spasm sneaks on the scene #ChatMS |
| John Yellowcard @jyellowcard @MustStopMS A9: CBD gummies from the vape shop. #chatms |
| iConquerMS @iConquerMS @YouViewIt38 @MustStopMS Well I woudn't really know because I have never tried any kind of "medical massage" haha #ChatMS |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A3 every day unfortunately #ChatMS |
| Must Stop MS! @MustStopMS RT @jyellowcard: @MustStopMS A9: @MustStopMS A9: CBD gummies from the vape shop. #chatms |
| iConquerMS @iConquerMS @MustStopMS Q10 - S T R E T C H ! #ChatMS |
| Must Stop MS! @MustStopMS RT @iConquerMS: @MustStopMS Q10 - S T R E T C H ! #ChatMS |
| Must Stop MS! @MustStopMS I'm getting so many notifications tonight I can barely keep up. I love it! You all are awesome! #ChatMS |
| Miss to Mrs. to MS @MisstoMrstoMS @MustStopMS A9 - Obviously there's no fix that will 100% help everyone, but despite my hesitancy of adding another med in the mix I'm beyond happy to have baclofen in my routine now. I also find moving is better - don't stop moving just because your muscles are misbehaving! #ChatMS |
| Must Stop MS! @MustStopMS I apologize if i missed anything. #chatMS |
| Mal 'Pram' Kiely @lancelotspram @MustStopMS A9. #ChatMS Yes, stretching helps for me, especially when I get the rare leg cramps in bed! |
| Kevin A @Big_in_VA @MustStopMS A8 - yes and he said at the level I was experiencing it that he felt it was normal given my other impacts from #MS and were I was in the progression of the disease. #ChatMS |
| Must Stop MS! @MustStopMS RT @MisstoMrstoMS: @MustStopMS A9 - Obviously there's no fix that will 100% help everyone, but despite my hesitancy of adding another med in the mix I'm beyond happy to have baclofen in my routine now. I also find moving is better - don't stop moving just because your muscles are misbehaving! #ChatMS |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A2 very strong 8.5 to 9 it's like my leg is stiff as a board and sometimes I have to physically bend it with my hands #ChatMS |
| Must Stop MS! @MustStopMS RT @lancelotspram: @MustStopMS A9. #ChatMS Yes, stretching helps for me, especially when I get the rare leg cramps in bed! |
| Mal 'Pram' Kiely @lancelotspram @MustStopMS #ChatMS - it's great! Thank you! |
| Jennie Narraway @jennarraway RT @MisstoMrstoMS: @MustStopMS A9 - Obviously there's no fix that will 100% help everyone, but despite my hesitancy of adding another med in the mix I'm beyond happy to have baclofen in my routine now. I also find moving is better - don't stop moving just because your muscles are misbehaving! #ChatMS |
| John Yellowcard @jyellowcard @luansills @MustStopMS I want to scream... no,no,no... why, will it zap it away? #chatms |
| Must Stop MS! @MustStopMS @Fdemyelination Whoa!!! That is awesome! #ChatMS |
| TruthBeTold @truthbetoldms @iConquerMS @MustStopMS #chatms be good to you. youtube some foot reaxing excersises. and seated yoga, If your balance isnt effected try regular yoga It helps |
| DawnFL59 🌊 @DawnFoss28 @MustStopMS A8 #ChatMS yes. He put me on Baclofen and Gabapentin, and suggested massage and acupuncture. I do water aerobics and he thought that would be helpful. He is pleased that I’m off the meds and using CBD oil and MMJ now instead. |
| Must Stop MS! @MustStopMS This hour absolutely FLEW by! #ChatMS |
| Must Stop MS! @MustStopMS Want to Host #ChatMS one week? Let me know! You choose the topic and the questions. It's a lot of fun. Have a great week everyone! |
 | Meshia @MzMeshia23 @MustStopMS #chatms cold and/or stress give me awful spasticity and my body is useless once I "hit that wall". |
| Jennie Narraway @jennarraway @MustStopMS Thank you all! #ChatMS |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A8. My nuero told me keep up the CBD and also started Botox injections. That helps also... told me to also keep working out that helps too #ChatMS |
| Kevin A @Big_in_VA @MustStopMS A9 - wish I did but I don’t. #ChatMS |
| YouViewIt (🕸Y💀uB🎃🎃It🕸) 38 MS @YouViewIt38 @iConquerMS @MustStopMS I had a deep tissue massage once when I threw out my back lifting a tree, that helped, but nerve pain is a whole new ball of wax.. #ChatMS |
| iConquerMS @iConquerMS @truthbetoldms @MustStopMS My balence is pretty bad haha... but yeah, everyone tells me about yoga, I just need to make the time #ChatMS |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A9. CBD, exercise, botox. Stay hydrated #ChatMS |
| Must Stop MS! @MustStopMS RT @MserRockstar: A9. CBD, exercise, botox. Stay hydrated #ChatMS |
| Must Stop MS! @MustStopMS @luansills Thanks for joining...as always :) #ChatMS |
| Kevin A @Big_in_VA @MustStopMS Thanks Randy afraid I didn’t have much to offer on tonight’s topic. Stay safe in our upcoming winter weather tomorrow night and Wednesday #ChatMS |
| DawnFL59 🌊 @DawnFoss28 @MustStopMS A9 #ChatMS. Talk to your doctor. Ask about medical CBD and marijuana if it is legal where you live. Stay hydrated. The worse spasms I’ve had were when I was slightly dehydrated. |
| Felisha “the knife in the kidney” 🪴 @felish_a I also enjoy warms baths with epsome salts and a heat pack from the microwave to help with spasticity #ChatMS |
| iConquerMS @iConquerMS @truthbetoldms @MustStopMS I have a yoga DVD for MS and I'M SURE it has seated yoga, how couldn't it? But like I said, I just have to actually DO IT haha.... #ChatMS |
| iConquerMS @iConquerMS @YouViewIt38 @MustStopMS Well, I have had a back massage but not for any issues or anything. But a leg massage? Nope! #ChatMS |
 | RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Hey #MultipleSclerosis fam! @MustStopMS is having their tweetchat tonight as well. They’re discussing muscle spasms, join the conversation using the hashtag: #ChatMS ⬇️⬇️⬇️ |
#ChatMS content from Twitter.