#ChatMS Transcript

Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.

ProfileTweet
Must Stop MS! @MustStopMS
It's that time again everyone! It's time for #ChatMS!
iConquerMS @iConquerMS
RT @MustStopMS: It's that time again everyone! It's time for #ChatMS!
Must Stop MS! @MustStopMS
We may be isolated, but we are still together. #AloneTogether #ChatMS
Keisha Hester @keisha_maree
@MustStopMS Hey there! 🧡 #chatms
Must Stop MS! @MustStopMS
@keisha_maree Hey how are you! #ChatMS
iConquerMS @iConquerMS
@MustStopMS I can't IMAGINE what this would be like without the internet and its ability to keep us all connected! #ChatMS
Must Stop MS! @MustStopMS
One thing I wanted to mention as we are isolated.....There have been some books shared under hashtag #BooksForCovid. #ChatMS
Must Stop MS! @MustStopMS
RT @iConquerMS: @MustStopMS I can't IMAGINE what this would be like without the internet and its ability to keep us all connected! #ChatMS
Must Stop MS! @MustStopMS
@iConquerMS I was thinking about this earlier too! I am so thankful social media exists. Aside from all the fake info that gets shared lol #ChatMS
Must Stop MS! @MustStopMS
@welch__em Hi Em! #ChatMS
Must Stop MS! @MustStopMS
@wtfschuster Hey whats going on? #ChatMS
Must Stop MS! @MustStopMS
This week's #ChatMS is going to be a little different again, but given the situation we are all in I think that's OK.
Must Stop MS! @MustStopMS
@luansills haha...social distancing Luan! #ChatMS
Must Stop MS! @MustStopMS
@welch__em ugh! #ChatMS
Must Stop MS! @MustStopMS
One topic suggest we had a couple weeks ago for #ChatMS was to dig beyond MS and get to know each other more. I thought we could use today to do just that. Who wants to make connections?
iConquerMS @iConquerMS
@MustStopMS It's defintely a doubled edged sword. But I like to think it does far more good than harm. #ChatMS
Must Stop MS! @MustStopMS
Another reminder before I start posting questions...You can follow #MSCovid19 to see updates on MS patients who have gotten Covid-19. #ChatMS
Must Stop MS! @MustStopMS
Here comes Q1! Let's get to know each other. #ChatMS
Must Stop MS! @MustStopMS
Q1 – One topic suggestion we had during last week’s #ChatMS was to go beyond MS and get to know each other more. Let’s make some friends. First, what is your name (if you share) and where are you chatting from? #ChatMS
Erica Wyatt @InterruptedMs
@MustStopMS A1. Erica from Atlanta, GA #chatMS
Keisha Hester @keisha_maree
@MustStopMS I’m Keisha, comin at you from Erie, PA! #chatms
PBW @Hawks50_2
@MustStopMS A1- Hi I’m Me and I’m from Minneapolis!! #chatms
christian . @dearest_monster
@MustStopMS A1 #chatMS Christian from Oklahoma
iConquerMS @iConquerMS
A1 - My name is Matt, I live in Southern California in the Riverside area, but I'm currently self-isolating with a relative in Long Beach. #ChatMS
Must Stop MS! @MustStopMS
A1 - My name is Randy and I am here in Maryland. Seafood Country! #ChatMS
christian . @dearest_monster
RT @MustStopMS: Another reminder before I start posting questions...You can follow #MSCovid19 to see updates on MS patients who have gotten Covid-19. #ChatMS
Must Stop MS! @MustStopMS
@wtfschuster @TheDianeKramer Correct answer is Capitals fan......#ChatMS
Must Stop MS! @MustStopMS
@EnjoyLi46809627 Does anyone like clowns? haha #ChatMS
iConquerMS @iConquerMS
@MustStopMS @EnjoyLi46809627 Do CLOWNS like clowns? #ChatMS
Must Stop MS! @MustStopMS
It's awesome to see so many from different areas joining in! #ChatMS
Must Stop MS! @MustStopMS
@welch__em I haven't been in a while actually. It's gone downhill so much compared to before. But I love the boardwalk. #ChatMS
Must Stop MS! @MustStopMS
@welch__em You'll have to let me know next time you guys drive through! #ChatMS
Must Stop MS! @MustStopMS
Q2 – If your friends were to describe you in just one word, what would that word be? Also, would you agree with that word they use? #ChatMS
Erica Wyatt @InterruptedMs
@MustStopMS A2. Positive. I would agree. I distance myself from negativity #chatMS
iConquerMS @iConquerMS
@luansills There is a lot of food I usually don't eat for one reason or another, but lately? I am pretty much eating whatever I can find at the store/online... and I feel it. #ChatMS
christian . @dearest_monster
@MustStopMS A2 #chatMS i asked the wife and she said, "weird" other friends would probably say the same. 😂😂
Must Stop MS! @MustStopMS
A2 - I would say determined. When i set a goal i do whatever it takes to achieve it. I also try to have fun with whatever I'm doing. #ChatMS
Keisha Hester @keisha_maree
@MustStopMS A2: Probably “smart”? But since I often can’t remember basic words, it seems a little silly 😂 #chatms
iConquerMS @iConquerMS
@MustStopMS A2 - "S A R C A S T I C" and yeah, I would totally agree (not being sarcastic, I really do agree haha) #ChatMS
Must Stop MS! @MustStopMS
@EnjoyLi46809627 haha i legit LOLd at this. #ChatMS
Must Stop MS! @MustStopMS
@luansills Paws the Beast! It has a ring to it....#ChatMS
Keisha Hester @keisha_maree
@MustStopMS A2b: My husband said “sunshine” which brightened my evening 😊 #chatms
Must Stop MS! @MustStopMS
@keisha_maree awwwww. #ChatMS
PBW @Hawks50_2
@MustStopMS A2- not afraid to speak my mind. Yeah it’s true. I always say it how it is. At the same time I give over my feelings as well. Very warm and open in that way too #chatms
Must Stop MS! @MustStopMS
Q3 – What are your favorite hobbies or activities? How long have you been enjoying them? #ChatMS
iConquerMS @iConquerMS
@luansills I always thought I hated exercise. Now I'm realizing just how much I miss it. I'm trying to adjust my routines to get those endorphins inside without any of my exercise equipment. #ChatMS
Kevin A @Big_in_VA
@MustStopMS A1 - My name is Kevin and I am in the Northern Shenandoah Valley of Virginia the Apple Country of Virginia. #ChatMS
iConquerMS @iConquerMS
@MustStopMS A3 - Lately? I'm not sure. Most my life I was into art. Drawing and sculpting. Before MS? Anything outside like camping or dirtbiking biking. I've always loved movies. I used to REALLY want to get into that industry. I toured cinema makeup school in Hollywood. #ChatMS
Erica Wyatt @InterruptedMs
@MustStopMS A3. Walking, jogging, reading #chatMS
PBW @Hawks50_2
@MustStopMS A3- I don’t think I have hobbies nowadays. If u call sitting on the porch and drinking coffee without my kids a hobby then yes I enjoy that very much. Lol #chatms
Coach Rusty @rusty_coach
@MustStopMS A1: Rusty from Atlanta #chatms
Must Stop MS! @MustStopMS
@TheDianeKramer major props to you for the masks you are sewing! #ChatMS
Coach Rusty @rusty_coach
@MustStopMS A2: funny (with all humility) #chatms
iConquerMS @iConquerMS
@luansills Yeah, worst case, I had a recumbent bike so dizziness wasn't much of an issue. Lately I switched to a rowing machine. I miss THAT right now. #ChatMS
Must Stop MS! @MustStopMS
@rusty_coach man I never would have guessed that one! #ChatMS
Coach Rusty @rusty_coach
@MustStopMS A3: I’ve played drums, keys and sung in bands since I was a teen. Mostly retired now but never say never #chatms
iConquerMS @iConquerMS
@MustStopMS A3 - Oh, and writing, I've always been good at writing since high school. I forgot to mention it because it seems so second nature, like breathing. #ChatMS
Kevin A @Big_in_VA
@MustStopMS A2 - Caring, I guess I would agree with it although in my younger days I would have said brotherly now at my current age it would be fatherly. #ChatMS
christian . @dearest_monster
@MustStopMS A4 #chatMS uhh, i dunno. My tastes are wide and varied. I can't say i have a singular interest or hobby, i like to try all sorts of things. Reading, playing games are the usual thing, staying up late and sitting in silence is a favorite activity of mine though.
Must Stop MS! @MustStopMS
@rusty_coach always wanted to learn the drums, but i know I'd just make a lot of noise lol. #ChatMS
Must Stop MS! @MustStopMS
Q4 – What about cool talents? Do you have any fun or interesting talents? #ChatMS
iConquerMS @iConquerMS
@MustStopMS @rusty_coach I tried learning a bit on my friend's set and... yeah... I basically annoyed myself into giving up. #ChatMS
Kevin A @Big_in_VA
@MustStopMS A3 - My biggest hobby used to be podcasting. #MS slowed me down enough I have gotten out of that on a regular basis. Handheld retro video gaming is now my thing and I spend about an hour a day playing also collecting them. #ChatMS
iConquerMS @iConquerMS
@luansills I never liked going to the gym. I have a garage full of equipment, a TV, and no one trying to be loud so everyone will look at them. #ChatMS
Kevin A @Big_in_VA
@welch__em @MustStopMS Well enjoy if you can and be safe if you venture out. #ChatMS
John Yellowcard @jyellowcard
@MustStopMS A2: Asked the wife and 21year old...wife - gregarious, daughter - excessive. #chatms
Must Stop MS! @MustStopMS
@Big_in_VA Handheld retro like Game Boy? #ChatMS
Coach Rusty @rusty_coach
@MustStopMS I do feel like people think playing a drum kit is pretty cool....for the first few minutes and then they get the point #chatms
PBW @Hawks50_2
@MustStopMS A4- my daughter thinks I can sing. My husband thinks I can cook. So I guess fooling people? #chatms
Must Stop MS! @MustStopMS
@Mayhew2nd sweet! #ChatMS
John Yellowcard @jyellowcard
@MustStopMS A3: Gym and music. #chatms
Kevin A @Big_in_VA
@MustStopMS A4 - No talents that I can think of other than I am a great listener for my friends and family. #ChatMS
iConquerMS @iConquerMS
@MustStopMS A4 - lol nothing to call home about, but I can twirl my cane like Dr. House. Yup. Talent. :D #ChatMS
MTerrenceJones @MTerrenceJones
A1..Michael from Alexandria and i am an Aries #chatms
Lucky Mendez @rmendez1
RT @MustStopMS: One topic suggest we had a couple weeks ago for #ChatMS was to dig beyond MS and get to know each other more. I thought we could use today to do just that. Who wants to make connections?
Must Stop MS! @MustStopMS
@MTerrenceJones What's going on man? #ChatMS
iConquerMS @iConquerMS
@luansills I think if I had friends with MS to go with I wouldn't mind, but all my MS friends are spread out across the planet. #ChatMS
Must Stop MS! @MustStopMS
Q5 – Because of MS, have you been able to maintain your hobbies/talents, or maybe learned any new ones? #ChatMS
MTerrenceJones @MTerrenceJones
RT @MustStopMS: Q2 – If your friends were to describe you in just one word, what would that word be? Also, would you agree with that word they use? #ChatMS
Christopher Sturdy @cbsturdy
@MustStopMS A1: Chris in Alberta Canada here! #ChatMS
Christopher Sturdy @cbsturdy
@MustStopMS A2: social. #ChatMS
Must Stop MS! @MustStopMS
@cbsturdy Hi Chris! #ChatMS
Christopher Sturdy @cbsturdy
@MustStopMS A3: Hobbies; exercise, walking my dogs, cooking. #ChatMS
iConquerMS @iConquerMS
@MustStopMS A5 - Aside from writing, I would say I've... made adjustments? As in, adjusting to not being able to do what I once could. Lame, I know. #ChatMS
Kevin A @Big_in_VA
@MustStopMS A5 - As for the Podcasting on a regular basis it has gone as #MS worked its will on me. Gaming I still do as much as I can. #ChatMS
christian . @dearest_monster
@MustStopMS A5 #chatMS while the MS msg have made some prior hobbies more difficult they're not impossible. I'm wanting to learn some songs on ukulele this year for shits
Coach Rusty @rusty_coach
@MustStopMS A5: can’t really run anymore so coed softball is pretty much done #chatms
Christopher Sturdy @cbsturdy
@MustStopMS A4: talents...Does quickly preparing full meals quickly from random ingredients count? #ChatMS
Erica Wyatt @InterruptedMs
@MustStopMS A5. Well my running turned into “slogging” (slow running lol) but I stay as active as I can. Hopefully I can add cycling once I start training for Bike MS #chatMS
PBW @Hawks50_2
@MustStopMS A4- oh I thought of a talent of mine. Knowing where things are when my husband and daughter can’t find them like ur shoe is in the closet on the third shelf on the left. Lol. #chatms
Christopher Sturdy @cbsturdy
@MustStopMS A5: can’t really run so I wal more than ever. #ChatMS
Must Stop MS! @MustStopMS
@cbsturdy Sounds like a talent to me! #ChatMS
MTerrenceJones @MTerrenceJones
A2 reserved..i would agree i like to size up the competition 😁 #chatms
Must Stop MS! @MustStopMS
@TheDianeKramer I think I'm allergic to running. That's my story and I'm sticking to it. #ChatMS
John Yellowcard @jyellowcard
A5: I am trying to teach myself Spanish. #chatms
Must Stop MS! @MustStopMS
@jyellowcard Hola! #ChatMS
iConquerMS @iConquerMS
@Big_in_VA @MustStopMS I'm a huge Zelda fan, I love Smash Bros, and other than those two I mostly enjoy retro gaming and Starcraft 2 on computer. Oh, and of course, card games like Uno on my Switch haha. #ChatMS
PBW @Hawks50_2
@MustStopMS A5- since the MS my hearing has become great. If I’m laying in bed I can tell what my 4 year old is doing in the living room or kitchen and I can tell her to stop lol. #chatms
Must Stop MS! @MustStopMS
Q6 – What’s your favorite TV show? Favorite Movie? Favorite Actor? And Favorite Musical Artist/Song? #ChatMS
Toby Berry @TobyBudd_Berry
@MustStopMS A5 - I’ve been lucky that at the most I can no longer run when it’s hot. #ChatMS
iConquerMS @iConquerMS
@MustStopMS @TheDianeKramer I guess like anything else you can develop an allergy 2 something in adulthood that you weren't allergic 2 before. I used 2 love running! They wanted me to join track in high school. But hmm, maybe I'm just allergic now? I like that excuse better than the whole MS thing. #ChatMS
MTerrenceJones @MTerrenceJones
A3. Does watching TV count? #chatms
Coach Rusty @rusty_coach
@MustStopMS A6: Mad Men for TV and prolly Tom Petty for music. The rest are fluid #chatms
Must Stop MS! @MustStopMS
A6 - I def have to say the office for a tv show. Fav actor has always been Jim Carey. Love his movies. #ChatMS
MS Views and News @MSViewsandNews
RT @MustStopMS: Q5 – Because of MS, have you been able to maintain your hobbies/talents, or maybe learned any new ones? #ChatMS
MS Views and News @MSViewsandNews
RT @MustStopMS: Q4 – What about cool talents? Do you have any fun or interesting talents? #ChatMS
Michelle @wordsbymj
@MustStopMS A1. Aw, I’m late. Michelle in the PNW 👋🏼 #ChatMS
iConquerMS @iConquerMS
@Big_in_VA @MustStopMS I was introduced to Zelda with Ocarina of time. I recently finished A Link to the Past and loved it. As far as Mario? All the 2D ones. Especially super Mario for SNES. #ChatMS #Nintendo #Zelda #Mario
Must Stop MS! @MustStopMS
@TheDianeKramer haha..It's about time for me to start binge watchign this on Netflix again...it's been too long. #ChatMS
Erica Wyatt @InterruptedMs
@MustStopMS A6. Show is hard but All Time Fav-Golden Girls. Current fav- Schitt’s Creek (Canadian show I discovered on Netflix). Actor: De Niro. Musical Artist/Song: Whitney Houston/I Wanna Dance With Somebody #chatMS
christian . @dearest_monster
@MustStopMS A6 #chatMS what we do in the shadows is a hilarious show. Radiohead is my forever band. I can always give then a listen. Favorite movie, uhhh, this year would be parasite or joker
Must Stop MS! @MustStopMS
@wordsbymj Hi MIchelle! #ChatMS
Kevin A @Big_in_VA
@MustStopMS A6 - TV show is tie between Emergency & Andy Griffith. Favorite Movie is WarGames and actor Mathew Broderick. #ChatMS
Must Stop MS! @MustStopMS
@iConquerMS @Big_in_VA I'm trying to get my son to play Ocarina of Time, but he wont do it! Driving me insane. #ChatMS
MTerrenceJones @MTerrenceJones
A4..i rocked a mean flutiphone back in the second grade..me and the wife can sum up any life situation with Chappelle Show references #chatms
Erica Wyatt @InterruptedMs
@TheDianeKramer @MustStopMS That was on my list too. Love The Office! #chatMS
Must Stop MS! @MustStopMS
Q7 – How do you like to spend your free time? What’s the go-to when nothing is on your schedule? #ChatMS
iConquerMS @iConquerMS
@MustStopMS A6 - TV show; Rick and Morty. Movie; All the marvel ones. Actor; Anthony Hopkins and Christopher Walken. Music? That's a tough one, it depend heavily on my mood. Probably Thrice. #ChatMS
PBW @Hawks50_2
@MustStopMS A6- Star Trek Voyager. #chatms
Christopher Sturdy @cbsturdy
@MustStopMS #ChatMS
Must Stop MS! @MustStopMS
I just realized we are past 8pm. I have one more question still. You're not in a hurry are you? lol #ChatMS
Guilherme Lamounier 🐔🚩⚛️⏳ @guilamour
@MustStopMS A1 - My name is Guilherme. I’m from Brazil. I live in Minas Gerais at state capitol Belo Horizonte. There’s some COVID-19 infected around.... I’m 42, history teatcher and MS portrait since 2011. Nice to meet you all!!! #ChatMS
MTerrenceJones @MTerrenceJones
A5 how dare MS take my joy of comedy away it think it enhances it. #chatms
Erica Wyatt @InterruptedMs
@MustStopMS A7. Sitting in the backyard with my pup #chatMS
Coach Rusty @rusty_coach
@MustStopMS A7: welllll I used to love the gym til a few weeks ago and someday I hope to again. Use it or lose it #chatms
Must Stop MS! @MustStopMS
@Mayhew2nd Gotta love family time! #ChatMS
Keisha Hester @keisha_maree
@MustStopMS A7: puppy cuddles. #chatms https://t.co/U4gaIRTz2g
Must Stop MS! @MustStopMS
@wtfschuster Sweet! #ChatMS
Must Stop MS! @MustStopMS
@guilamour Hey there! Hope you're staying safe and healthy! #ChatMS
iConquerMS @iConquerMS
@MustStopMS @Big_in_VA ! :O ! :O ! :O That is like the best of all Zelda games. CLASSIC! Maybe the younger generation just can't appreciate it lol. I couldn't tell you just how many times I've played through that game. I feel like I have most of it memorized! #ChatMS
Kevin A @Big_in_VA
@MustStopMS @iConquerMS The Minish Cap is my favorite. #ChatMS
Must Stop MS! @MustStopMS
@iConquerMS @Big_in_VA Right! I keep telling him he doesn't know what he's missing. #ChatMS
Ken 💉 *Pfully Pfizered x 3!* 💉 @pathseekerken
@MustStopMS @MustStopMS I have a question after you're done. Is it OK if I piggy back on your forum to ask it? #chatms
Must Stop MS! @MustStopMS
@pathseekerken Of course! Whats the question? #ChatMS
iConquerMS @iConquerMS
@Big_in_VA @MustStopMS I'm about halfway through that one but I'm feeling stuck. So far, the majority of that game feels like a huge fetch-quest, even for Zelda. But now that I'm stuck in the house for the foreseeable future, I might pick it back up. #ChatMS
Must Stop MS! @MustStopMS
Q8 – Let’s end with a laugh…..What’s your favorite joke? #ChatMS
Kevin A @Big_in_VA
@MustStopMS A7 - if brain exhaustion I watch something mindless on TV if I can focus then read or game. #ChatMS
iConquerMS @iConquerMS
@MustStopMS A7 - Lately? Listening to music and practicing tracing drawings on my tablet to try to retrain my hands to use their long-lost fine motor skills. #ChatMS
iConquerMS @iConquerMS
@MustStopMS @Big_in_VA Lol! Maybe we're just getting old? Like how older generations criticize "kids these days" for not appreciating older films. Haha..... -sigh- whatever. It's a great game and you'll never convince me otherwise, not even with all the silver rupees in the world. #ChatMS
Must Stop MS! @MustStopMS
A8 - I'm all about corny jokes and dad jokes lol #ChatMS Why can't dinosaurs clap their hands? -Because they're dead
PBW @Hawks50_2
@MustStopMS A7- face time my friends. Talk to my sisters on the phone. Watch cooking videos lol. Bake. Get stuck in the couch. 🤷‍♀️ #chatms
Michelle @wordsbymj
@MustStopMS A2. Okay, my friend said righteous, then added thoughtful, compassionate, & super-smart. I’ll take ‘em all w two caveats: I’m righteous as in ethical, not saintly or imperious. And as someone else said, I don’t feel super-smart these days bc cog deficits, aphasia. #ChatMS
Guilherme Lamounier 🐔🚩⚛️⏳ @guilamour
@MustStopMS A2 - Friendly, I think.... #ChatMS
Kevin A @Big_in_VA
@MustStopMS A8 - Has to do with a bear and a rabbit taking a poop in the woods. Things don’t end well for the rabbit. 😁 #ChatMS
MTerrenceJones @MTerrenceJones
A7 doing as little as possible. My go to when nothing is on my schedule is listening to 90s hip hop #chatms
Ken 💉 *Pfully Pfizered x 3!* 💉 @pathseekerken
@MustStopMS Has anyone else had personality changes since their diagnosis? People used to comment how patient I was all the time. Now I'm beyond irritable and crabby all the time. I hate it. I don't like myself like this. #chatms
Must Stop MS! @MustStopMS
You guys are awesome. I hope you enjoyed the chat this week and getting to know each other a little more. #ChatMS
Mary P. Pettigrew @pettigrew66
RT @ancan501c3: SOCIALLY UN-DISTANCE with us SAFELY. On Tue Mar 24 at 8.30 pm Eastern join our free, drop-in MS Virtual Support Group https://t.co/1KvfokISbq @HealthHats @ActiveMSer @DanJenDig @pettigrew66 @JackieZimm@shiftms @mssociety @MSSocietyCanada #chatMS https://t.co/8sFltYMSij
iConquerMS @iConquerMS
@MustStopMS A8 - LOL that kind of stuff has to stay offline and in my head, I have way too dark of a sense of humor. Where others might be offended I can laugh at myself. How about any joke on Family Guy or AmericanDad? That stuff isn't so bad. lol... #ChatMS
Must Stop MS! @MustStopMS
RT @pathseekerken: @MustStopMS Has anyone else had personality changes since their diagnosis? People used to comment how patient I was all the time. Now I'm beyond irritable and crabby all the time. I hate it. I don't like myself like this. #chatms
John Yellowcard @jyellowcard
@MustStopMS Q7: I love to cook, it is taxing. #chatms
#ChatMS content from Twitter.