#ChatMS Transcript
Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Must Stop MS! @MustStopMS Alright everyone...stop what you're doing and head over to #ChatMS!!! |
| Must Stop MS! @MustStopMS So what was on everyone's to-do list today while being socially distant? #ChatMS |
| Must Stop MS! @MustStopMS Today is back to a more normal #ChatMS. We will be talking about accepting the disease, which some of us may not have yet. This was a topic suggestion from a few weeks ago. |
| Must Stop MS! @MustStopMS I do have a special announcemnt before we get going with the questions though! #ChatMS |
| Must Stop MS! @MustStopMS After the chat today, at 8:15pm EST, we will be hosting our first ever #ChatMS virtual hangout via the zoom app. A big Thank You to @TheDianeKramer for putting this together. Come join in and lets just chat about whatever! Here's this link: https://t.co/Ec6QaTKSOd |
 | Michelle @wordsbymj @MustStopMS Paperwork to try getting help at home, checking if toilet paper is back in stock (nope), #ChatMS |
| Must Stop MS! @MustStopMS @wordsbymj crazy isn't it? You'd think the paper would slowly come back in stock #ChatMS |
| Must Stop MS! @MustStopMS All you need is the zoom app on your PC or mobile device and click the link to join in! #ChatMS |
 | Deb Spoon @SpoonProduction @MustStopMS Working out like crazy to kill the frustrations #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll snowy?? yikes #ChatMS |
| Must Stop MS! @MustStopMS Here comes Q1! #ChatMS |
| Must Stop MS! @MustStopMS Q1 – They say there are five steps to accepting an illness…Denial, Anger, Fear, Depression, and Acceptance. What step would you say you are on currently? #ChatMS |
 | iConquerMS @iConquerMS @MustStopMS A1 - I would say I have accepted MS but that doesn't mean it's an easy reality to face every single day. #ChatMS |
 | charlotte ballenger @sadiepuss Change the cat boxes, dust, clean the bathroom, vacuum, and mop. Whee! |
 | Coach Rusty @rusty_coach @MustStopMS A1: I’ve been in acceptance for a long time but I spent the first 2-3 years toggling between fear and anger #chatms |
| iConquerMS @iConquerMS RT @MustStopMS: Q1 – They say there are five steps to accepting an illness…Denial, Anger, Fear, Depression, and Acceptance. What step would you say you are on currently? #ChatMS |
| Must Stop MS! @MustStopMS @luansills @TheDianeKramer I'll be throwing a hat on haha #ChatMS |
| Deb Spoon @SpoonProduction A1- safe to say I'm still in denial with me still not accepting my limitations while now piling anger, fear, and depression all in one go #ChatMS |
 | Anastasia Soula @anasou63 A1-acceptance #ChatMS |
| Must Stop MS! @MustStopMS @iConquerMS great answer! #ChatMS |
| Michelle @wordsbymj @TheDianeKramer Will it be recorded or shared? Last week’s ancan chat was, to my surprise and dismay. #ChatMS |
| Must Stop MS! @MustStopMS @TheDianeKramer I am like this too and similar to @iConquerMS 's response. I have accepted but there are still fearful times. #ChatMS |
 | Guilherme Lamounier 🐔🚩⚛️⏳ @guilamour @MustStopMS 1- call dad & mammy 2- clean home 3- curse the president 4- Watch a serie 5- read some poetry 6- curse the president 7- study with daughter 8- make burguers for my family 9- enjoy #chatMS 10- Did I said “curse the president”??? |
 | Mary P. Pettigrew @pettigrew66 Hey guys! Seems bandwidth issues are keeping me from getting timely notifications & everything is very slow. I wanted to join y’all! 😭#ChatMS |
| Must Stop MS! @MustStopMS @guilamour I think you forgot to mention curse the president #ChatMS |
 | Kevin A @Big_in_VA @MustStopMS A1 - That is easy I am in Acceptance. I managed to get there about 6 months after diagnosis. #ChatMS |
| Must Stop MS! @MustStopMS Here comes Q2! #ChatMS |
| Must Stop MS! @MustStopMS Q2 – Does it ever feel like you are on multiple steps of acceptance at the same time? Or have even taken a step backwards at times? #ChatMS |
 | Keisha Hester @keisha_maree @MustStopMS A1: anger or depression today. Grand scheme of things I’ve reached acceptance, but I’m really suffering right now so I’m not totally cool with it at the moment. #chatms |
| iConquerMS @iConquerMS @MustStopMS @TheDianeKramer MS is always changing. Sometimes daily. So the MS we accepted is probably not the same MS that we are living with today (be it better or worse). I think a huge part of acceptance when it comes to MS is accepting the uncertainty that comes with it. For me at least, #ChatMS |
| Guilherme Lamounier 🐔🚩⚛️⏳ @guilamour RT @MustStopMS: @guilamour I think you forgot to mention curse the president #ChatMS |
| Anastasia Soula @anasou63 @MustStopMS A2-it’s a spiral staircase #chatMS |
| Must Stop MS! @MustStopMS A2 - oh yes. Sometimes I feel like I'm laid across quite a few! #ChatMS |
| Keisha Hester @keisha_maree @MustStopMS A2: I definitely bounce around. The only one I don’t ever really revisit anymore is “denial.” That one was STRONG when I was diagnosed as a teenager. But now I mostly bounce around the others, depending on the day. #chatms |
| Kevin A @Big_in_VA @MustStopMS A2 - Occasionally yes it does feel like acceptance goes through its own stages. Not going backwards but goes sideways in a few directions at once at times. #ChatMS |
| iConquerMS @iConquerMS @MustStopMS A2 - I never saw it as a process of "steps" but instead a checklist. Doesn't matter WHAT order you do them all, you just have to do them and sometimes more than once and most the time? A few at a time. Anger and depression especially (for me). #ChatMS |
 | MS Patient, Dana @Chalenging_MS A1 #ChatMS. Acceptance. DX 2006 14 years into this experience |
| Must Stop MS! @MustStopMS Q3 up next! #ChatMS |
| Guilherme Lamounier 🐔🚩⚛️⏳ @guilamour @MustStopMS A1 - I am in acceptance. Since beggining I try to be connected with other portraits from my country and from others, reaching support and friendship. It’s been helpful to me. But depression has been present as well years by. #ChatMS |
| Must Stop MS! @MustStopMS Q3 – Some have answered already, but If you feel you have reached the step of accepting the diagnosis, how long did it take you to get there? What helped you the most in getting there? #ChatMS |
| Kevin A @Big_in_VA @luansills @MustStopMS Thanks, age and so many other things going on in my life is why I think and people depending on me let me. Plus having lived through so many personal traumas at young age taught me to accept things a lot quicker and get on with life as it was now being handed to me. #ChatMS |
| iConquerMS @iConquerMS @MustStopMS Probably about 6 years or so. It took a bit of a mental breakdown and some therapy. FUN!.. #ChatMS |
| Anastasia Soula @anasou63 @MustStopMS A3-it takes long but my faith helped #chatMS |
| Keisha Hester @keisha_maree @MustStopMS A3: I think I just needed time to process and work through everything. I’m sure my trajectory would have been different if I’d been a different age or with other factors changed, like the severity at onset. #chatms |
| Kevin A @Big_in_VA @MustStopMS A3 - I did it again answered early, yes 6 months. Plus having lived through personal traumas at a young age & having other people depending on me. This taught me to take the situation as it is now and deal with it and move forward. #ChatMS |
| MS Patient, Dana @Chalenging_MS A3 #chatMS acceptance happen only after I developed new coping skills. the coping skill I had originally developed in my pre MS existence were all based on physical activity. Until I could short out my emotions without physical activity I was stuck in rebellious teenager anger |
| Must Stop MS! @MustStopMS Here we go with Q4! #ChatMS |
| Must Stop MS! @MustStopMS Q4 – How do you know that you have reached the point of accepting? Alternatively, how do you know you have not reached that step? #ChatMS |
| Guilherme Lamounier 🐔🚩⚛️⏳ @guilamour @MustStopMS A2 - I did never denied it, not fear it as well, sometimes angry, but cool. Depression and acceptance are like a pair of dancers performing a tango.... #ChatMS |
| MS Patient, Dana @Chalenging_MS A4 #chatMS I can help others. This shows me I have moved through the darkness and can offer help/light to others that must take this unusual journey |
| Michelle @wordsbymj @karmabi39505804 @MustStopMS A4. Yes—I know I haven’t accepted it yet bc I don’t know what *it* is. Naming is such a powerful and empowering act. I’m waiting for that validation and focus. #ChatMS |
 | 5wvufansinva @5wvufansinva @MustStopMS A1 #ChatMS I cried for the first 3 days, and since then it’s been acceptance. That was 22 years ago and it doesn’t rule me. |
| Kevin A @Big_in_VA @MustStopMS A4 - What really brought it home was when I decided I could openly talk about it with anyone and also started working to educate others about the disease and it’s impacts on my life and others lives. #ChatMS |
| Must Stop MS! @MustStopMS RT @Chalenging_MS: A4 #chatMS I can help others. This shows me I have moved through the darkness and can offer help/light to others that must take this unusual journey |
| Must Stop MS! @MustStopMS @Chalenging_MS love this! #ChatMS |
| Deb Spoon @SpoonProduction @MustStopMS A4- I know I haven't reached it bc I still question it. I'm still incredibly angry and fearful of the unknown with this which has led to depression. But I haven't been able to talk to anyone yet so I deal with the dark thoughts. #ChatMS |
 | Christopher Sturdy @cbsturdy @MustStopMS A1: acceptance with an occasional dash of fear. #ChatMS |
 | christian . @dearest_monster @MustStopMS A1 #chatMS acceptance |
| Christopher Sturdy @cbsturdy @MustStopMS A2: step varies by day or time of day. #ChatMS |
| iConquerMS @iConquerMS @karmabi39505804 @MustStopMS That's a really good answer. I never really thought about that. #ChatMS |
| Must Stop MS! @MustStopMS Q5 coming alive! #chatMS |
| Christopher Sturdy @cbsturdy @MustStopMS A3: acceptance is not the same as complacency or being a doormat. It just means investing time and energy in useful pursuits, not self pity amd complaining. #ChatMS |
| Must Stop MS! @MustStopMS RT @cbsturdy: @MustStopMS A3: @MustStopMS A3: acceptance is not the same as complacency or being a doormat. It just means investing time and energy in useful pursuits, not self pity amd complaining. #ChatMS |
| Must Stop MS! @MustStopMS Q5 – In your opinion, what could be done better to help those diagnosed with MS climb or deal with these acceptance steps easier? #ChatMS |
| christian . @dearest_monster @MustStopMS A2 #chatMS sure, while I accept it all, doesnt mean i dont go through the whole gamut of feelings. Its still all a shit show |
| Christopher Sturdy @cbsturdy @MustStopMS A4; when you spend more time focusing on what you can do rather than lamenting what you can’t do. #ChatMS |
 | Erica Wyatt @InterruptedMs @MustStopMS A4. When I could publicly discuss it. That was a feeling of freedom #chatMS |
| Must Stop MS! @MustStopMS RT @InterruptedMs: @MustStopMS A4. When I could publicly discuss it. That was a feeling of freedom #chatMS |
| Christopher Sturdy @cbsturdy @MustStopMS A5; pair newly diagnosed with veteran MSers to lessen the freak out phase. #ChatMS |
| Must Stop MS! @MustStopMS @luansills Paws the Beast! #ChatMS |
| Erica Wyatt @InterruptedMs @MustStopMS A3. About 3-4 months. Felt like a weight was lifted off me when I did #chatMS |
| Anastasia Soula @anasou63 @MustStopMS A5- the MSF offers help to get equipment you May need #chatMS |
| Kevin A @Big_in_VA @cl3me @MustStopMS That’s great mine is less official than yours but I never shy away from a chance to share/educate others. #ChatMS |
| iConquerMS @iConquerMS @MustStopMS A5 - Some kind of therapy, specifically for those newly diagnosed with a chronic illness, should be made more easily available and should be covered by insurance if not free because for too many people it's not even a realistic option. #ChatMS |
| christian . @dearest_monster @MustStopMS A3 #chatMS never gone through a denial or anger phase. since the beginning I've been accepting of it all. What do we do next. No reason to doubt what's right in front of you. |
| MS Patient, Dana @Chalenging_MS A5 #chatMS. Stop discouraging people from taking care of their mental health! Things need to be talked about to be process. If your not going to be a good enough friend to listen help someone find a counselor that will |
| Must Stop MS! @MustStopMS RT @Chalenging_MS: A5 #chatMS. Stop discouraging people from taking care of their mental health! Things need to be talked about to be process. If your not going to be a good enough friend to listen help someone find a counselor that will |
| Must Stop MS! @MustStopMS Question 6 is coming right up! #ChatMS |
| Guilherme Lamounier 🐔🚩⚛️⏳ @guilamour @MustStopMS A4 - I reached accepting when I feel save to help other people overcome fear or angry of MS. Today I don’t feel so save to do it because to many has more health troubles than me. Sometimes I feel worthless for anything. #ChatMS |
| Erica Wyatt @InterruptedMs @MustStopMS A5. I agree with other people about pairing newbies with people who have been diagnosed for a while. I remember when I first started meeting other people with MS, it helped a lot #chatMS |
| Kevin A @Big_in_VA @MustStopMS A5 - I not sure about this but maybe a 12 step program similar AA has for those recovering from that disease. They are accepting what they have after all. #ChatMS |
| Must Stop MS! @MustStopMS RT @InterruptedMs: @MustStopMS A5. I agree with other people about pairing newbies with people who have been diagnosed for a while. I remember when I first started meeting other people with MS, it helped a lot #chatMS |
| Must Stop MS! @MustStopMS @guilamour Just by telling your story is an important part of advocacy and helping others. #ChatMS |
| christian . @dearest_monster @MustStopMS A5 #chatMS especially for those newly diagnosed perhaps a more involved MS nurse. Like those quit smoking coaches that call you all the time. |
| Must Stop MS! @MustStopMS Q6 – Have you discussed your different emotions with your neurologist, a therapist, or other specialist? What was their advice? #ChatMS |
| iConquerMS @iConquerMS RT @MustStopMS: Q6 – Have you discussed your different emotions with your neurologist, a therapist, or other specialist? What was their advice? #ChatMS |
| Kevin A @Big_in_VA @MustStopMS A6 - Not in any real detail other than as they relate to certain symptoms. Advice was to bring in the family member to have another discussion as a small group. #ChatMS |
| christian . @dearest_monster @MustStopMS A6 #chatMS i saw a therapist later on in the diagnosis. The usual depression tended to get out of hand from time to time. It's great building rapport with this neutral party. |
| Must Stop MS! @MustStopMS @eseretk What is the name? I apologize if i missed it? #ChatMS |
| MS Patient, Dana @Chalenging_MS A6 #chatMS a counselor no advice was given, she just let me talk & talk until I could hear what I was saying & process it |
| Must Stop MS! @MustStopMS @wtfschuster that's awful. MS plays a huge role in mental health as well as physical. #ChatMS |
| Erica Wyatt @InterruptedMs @MustStopMS A6. No but ironically I told my newly diagnosed friend I need to talk to a therapist concerning a few things I sometimes struggle with #chatMS |
| Must Stop MS! @MustStopMS RT @InterruptedMs: @MustStopMS A6. No but ironically I told my newly diagnosed friend I need to talk to a therapist concerning a few things I sometimes struggle with #chatMS |
| Must Stop MS! @MustStopMS Here comes Q7! #ChatMS |
| Must Stop MS! @MustStopMS Q7 – What tips or advice can you offer to those with MS who are having difficulty in accepting it or climbing the different steps? #ChatMS |
| Guilherme Lamounier 🐔🚩⚛️⏳ @guilamour RT @MustStopMS: @guilamour Just by telling your story is an important part of advocacy and helping others. #ChatMS |
| Kevin A @Big_in_VA @MustStopMS A7 - Start by asking your neurologist for recommendations on local resources available to you. That can help you get a good foot hold on climbing the ladder we all have climbed or will climb. #ChatMS |
| iConquerMS @iConquerMS @MustStopMS A7 - Join some support groups for MS on Facebook (many are private) so you can talk to other who have been or still are where you are. Need be, find a therapist. Even if they don't have helpful things to say, just being able to vent to someone can help a lot. #ChatMS |
| Must Stop MS! @MustStopMS RT @Big_in_VA: @MustStopMS A7 - Start by asking your neurologist for recommendations on local resources available to you. That can help you get a good foot hold on climbing the ladder we all have climbed or will climb. #ChatMS |
| Must Stop MS! @MustStopMS RT @iConquerMS: @MustStopMS A7 - Join some support groups for MS on Facebook (many are private) so you can talk to other who have been or still are where you are. Need be, find a therapist. Even if they don't have helpful things to say, just being able to vent to someone can help a lot. #ChatMS |
| MS Patient, Dana @Chalenging_MS A7 #chatMS depends where they are in the process. But talk talk talk about it as much as you need to, if that means going to counseling because your friends are sick of hearing about it. Then go to counseling this is about you, this is about you getting to where you need to be |
| Must Stop MS! @MustStopMS A7 - Not everyone is going to look at the steps or climb the steps the same way. It's ok if you drop a step down. Reach out to others. #ChatMS |
| Christopher Sturdy @cbsturdy @MustStopMS A7; focus on what you can do and use the MS diagnosis as motivation to get healthy and fit! #ChatMS |
| christian . @dearest_monster @MustStopMS A7 #chatMS accept it or not but the quicker you come to terms the easier it'll be on your mind. It's just a new normal, don't shut yourself out to what people say, they'll eventually be some sound advice sprinkled in all b.s. advice and empty rhetoric |
| Must Stop MS! @MustStopMS RT @dearest_monster: @MustStopMS A7 #chatMS accept it or not but the quicker you come to terms the easier it'll be on your mind. It's just a new normal, don't shut yourself out to what people say, they'll eventually be some sound advice sprinkled in all b.s. advice and empty rhetoric |
| Must Stop MS! @MustStopMS I love hearing everyone's experiences. We are all so different, yet our experiences are so similar. #ChatMS |
| Must Stop MS! @MustStopMS Well all, our #ChatMS hour has come to an end, but our fun has not. Remember in 15 minutes join @TheDianeKramer and I on Zoom. Here's the link to join: https://t.co/Ec6QaTKSOd |
| Must Stop MS! @MustStopMS Have a great week everyone. Hope to see you all here shortly! #ChatMS |
| Must Stop MS! @MustStopMS RT @justmagi76: |
 | MS Views and News @MSViewsandNews RT @MustStopMS: Well all, our #ChatMS hour has come to an end, but our fun has not. Remember in 15 minutes join @TheDianeKramer and I on Zoom. Here's the link to join: https://t.co/Ec6QaTKSOd |
| Guilherme Lamounier 🐔🚩⚛️⏳ @guilamour @MustStopMS A7- keep on the road. It’s not the end, but a new beginning. Now you joined a team of very strong people who fights large difficults. We all can love and be loved despite then. Love yourself and be arround who love you as well. That’s sweetest spice of life. #chatMS https://t.co/1zPcySvKYc |
| Must Stop MS! @MustStopMS RT @guilamour: @MustStopMS A7- keep on the road. It’s not the end, but a new beginning. Now you joined a team of very strong people who fights large difficults. We all can love and be loved despite then. Love yourself and be arround who love you as well. That’s sweetest spice of life. #chatMS https://t.co/1zPcySvKYc |
 | PBW @Hawks50_2 @MustStopMS A1- mostly acceptance with a little bit of anger, depression, and fear at times. My parents are stuck in the denial stage. #chatms |
| Erica Wyatt @InterruptedMs @MustStopMS A7. Remember it’s ok to feel upset, sad or worried. Just don’t stay in that space. Find out what your new normal looks like and embrace it. Surround yourself with positive people (I’ve met so many cool MS virtual friends) and don’t forget to celebrate the small stuff #ChatMS |
| PBW @Hawks50_2 @MustStopMS A3- took me about 2 years I think. I had a support person (@PW_Mpls ) who showed me that we will get through it slowly and adapt to what we need to. #chatms |
| PBW @Hawks50_2 @MustStopMS A4- when u start making plans to accommodate ur MS not making normal plans and then going nuts when they don’t work. #chatms |
| Must Stop MS! @MustStopMS RT @InterruptedMs: @MustStopMS A7. Remember it’s ok to feel upset, sad or worried. Just don’t stay in that space. Find out what your new normal looks like and embrace it. Surround yourself with positive people (I’ve met so many cool MS virtual friends) and don’t forget to celebrate the small stuff #ChatMS |
| PBW @Hawks50_2 @MustStopMS A5- support and people showing newcomers that life does continue in fulfilling ways. For me it was when I realized that I can still be a mom and even go on to have more kids. #chatms |
| Michelle @wordsbymj RT @InterruptedMs: @MustStopMS A7. Remember it’s ok to feel upset, sad or worried. Just don’t stay in that space. Find out what your new normal looks like and embrace it. Surround yourself with positive people (I’ve met so many cool MS virtual friends) and don’t forget to celebrate the small stuff #ChatMS |
| PBW @Hawks50_2 @MustStopMS A7- find people or even one person who will support you and go through the journey with u. Also it will take time. Go easy on urself. I never thought I would make it to this point. And always just breathe #chatms |
| Must Stop MS! @MustStopMS RT @Hawks50_2: @MustStopMS A7- find people or even one person who will support you and go through the journey with u. Also it will take time. Go easy on urself. I never thought I would make it to this point. And always just breathe #chatms |
 | Kelly Tagaban @TagalongCmon RT @MustStopMS: Q2 – Does it ever feel like you are on multiple steps of acceptance at the same time? Or have even taken a step backwards at times? #ChatMS |
#ChatMS content from Twitter.