#ChatMS Transcript
Healthcare social media transcript of the #ChatMS hashtag.
– ().
See #ChatMS Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | TruthBeTold @truthbetoldms Is there any Easter Chocolate left or were we all good? #ChatMS |
| TruthBeTold @truthbetoldms Tonight we are talking about risk factors. lack of Vitamin D is a big riak factor in the progression of M.S. Q1. Do you find a difference when you take Vitamin D #ChatMS |
| TruthBeTold @truthbetoldms Q2. Did you or do you smoke. If you quit did you notice a difference? #ChatMS |
 | Salvatore @bulldog92711 @truthbetoldms A1 - I haven’t noticed a difference #chatms |
 | John Yellowcard @jyellowcard @truthbetoldms A1: I take it everyday. #chatms |
 | christian . @dearest_monster @truthbetoldms A1 #chatMS I smoked for about a year and a half around 2007, 08 but quit soon after buying a carton of cigarettes |
 | A Life Less Traveled @mjwentink @truthbetoldms My neuro reg tracks my Vit D levels and I take a supplement if its ever very low. Can't say I've noticed a difference, tho, (in energy, etc.) before or after taking the supplement #chatms |
| John Yellowcard @jyellowcard @truthbetoldms A2: I used to smoke. It really messes with my balance and walking do I quit. #chatms |
| christian . @dearest_monster @truthbetoldms A1 #chatMS been taking high dose vitamin D, once a week and I've noticed a feeling with and without |
| Salvatore @bulldog92711 @truthbetoldms A2 - I haven’t notice much of a difference when I quit smokes for 2 years, than smoking now! My back pain and joint problems have always been a problem #chatms |
 | Kevin A @Big_in_VA @truthbetoldms A1 - I can’t say I notice anything directly from taking it but I do it daily nonetheless. #ChatMS |
| TruthBeTold @truthbetoldms Q3. They say M.S. sows up in families. Through generations or siblings Does anyone else in your immediate or extended family have M.S. #chatms |
| Kevin A @Big_in_VA @truthbetoldms A2 - I never smoked regularly. I smoked a pipe occasionally and cigars occasionally but stopped both 25 years or more ago. #ChatMS |
| Salvatore @bulldog92711 @truthbetoldms A3 - My sister was diagnosed with MS when she was 15. She is 48 now! #chatms |
| christian . @dearest_monster @truthbetoldms A3 #chatMS I have a cousin in Guatemala who they think may have it too but I don't believe she's ever been diagnosed 🤷🏼♂️ |
| A Life Less Traveled @mjwentink @truthbetoldms Nope, have never smoked #chatms |
| TruthBeTold @truthbetoldms an add on to Q3. Does having someone else in the family help with the support from family members ? #chatms |
| Kevin A @Big_in_VA @truthbetoldms A3 - none that I am aware of or were ever diagnosed with it. I pray my children nor any of my future descendent‘s have to suffer with this awful disease. #ChatMS |
| John Yellowcard @jyellowcard @bulldog92711 @truthbetoldms She must be strong. #chatms |
| John Yellowcard @jyellowcard Love that shit... #chatms |
| TruthBeTold @truthbetoldms #chatms Q4 I recently interviewed Dr. Beaber out Body Mass Index. Did anyone ntice a difference if they lost weight? #chatms |
| John Yellowcard @jyellowcard RT @Big_in_VA: @truthbetoldms A3 - none that I am aware of or were ever diagnosed with it. I pray my children nor any of my future descendent‘s have to suffer with this awful disease. #ChatMS |
| Salvatore @bulldog92711 @jyellowcard @truthbetoldms She is, she’s been on Copaxone all these years and she may need something different #chatms |
 | Aleyna @AleynaMoreHuman A2: smoked when younger. Quit long before dx #ChatMS |
| John Yellowcard @jyellowcard I know... it calls me... but I am definitely better off for quitting. #chatms |
| A Life Less Traveled @mjwentink @Lighty99 @truthbetoldms Prob abt quarterly...and every other appt he takes blood labs. When I was on IVIG it was even more regular than that, they'd do the blood draws related to IVIG but wld check Vit D while they were at it #chatms |
| TruthBeTold @truthbetoldms #chatms Great work on the weight loss. Its aa real accomplishment. |
| Kevin A @Big_in_VA @truthbetoldms A4 - Yes I have had a major weight loss since just before my initial diagnosis. I have lost 25% of my weight. That is mostly due to a lack of appetite since I lost all the taste in the left side of my mouth. That makes food much less appealing therefore I eat a lot less. #ChatMS |
| TruthBeTold @truthbetoldms Q5 did anyone have dual diagnoses, chrons, epstein barr,Celiac #chatms |
| Kevin A @Big_in_VA @truthbetoldms A5 - Thankfully no #ChatMS |
| John Yellowcard @jyellowcard @Lighty99 I agree, I cannot use it during the day. It makes me say weird stuff and no one understands. #chatms |
| John Yellowcard @jyellowcard @truthbetoldms A5: I have psoriasis, always have. #chatms |
 | Samantha Kay @SamNotPam @truthbetoldms A3 my aunt has it. She’s cruising on 90 yrs and doing great. So I have some hope in all this! #ChatMS |
| A Life Less Traveled @mjwentink @truthbetoldms I'm the first in my immediate or extended family to be diagnosed with MS, cuz I'm special like that 😂😷🤕#chatms |
| TruthBeTold @truthbetoldms I asked about dual diagnosed becaise in the past 3 weeks I have met four people who were diagnosed with something other than M.S. first then diagnosed with M.S. It does all seem to be gut related. #chatms |
 | Cathy Chester @CathyChes I have IBS as well #chatms |
| TruthBeTold @truthbetoldms #chatms this is hope . Crusing with M.S. at 90 |
| Salvatore @bulldog92711 @truthbetoldms A5 - None! #chatms |
| TruthBeTold @truthbetoldms Q7. Stress is the # 1 risk factor. What if anything do you do to releive stress. #chatms |
| TruthBeTold @truthbetoldms Yes you are and you are amazing. marie |
| Kevin A @Big_in_VA @truthbetoldms A6 - Yes they monitor me regularly with blood work and office visits. Blood work frequency will increase as I understand it with the change in my DMT getting ready to begin. #ChatMS |
| Salvatore @bulldog92711 @truthbetoldms A7 - Workout 🏋️♂️ and exercise when possible! #chatms |
| TruthBeTold @truthbetoldms Q8, for those of us who cant do physical (running) is there anything else you do that releives stress? #chatms |
| Kevin A @Big_in_VA @truthbetoldms A7 - I do my best to avoid it with assistance of family and friends. When does occur I try to go to my happy place and center my thoughts to relieve it. #ChatMS |
| TruthBeTold @truthbetoldms #chatms does this include any kind of guided meditation? |
| Kevin A @Big_in_VA @truthbetoldms A8 - sorry I jumped ahead and answered this in my previous answer. #ChatMS |
| TruthBeTold @truthbetoldms Last thought, we know that depression is higher in people with M.S. 7% higher than the general population. Other than excersise what do you do to keep it at bay. Ive been on anti-depressnts for awhile. #chatms |
| Kevin A @Big_in_VA @truthbetoldms Not formally no it doesn’t. I have learned many ways of doing this over my lifetime many before diagnosis so rely on them usually. Some are recommendations from people I knew in my younger days and they seemed successful at them so I adopted and/or modified them. #ChatMS |
| TruthBeTold @truthbetoldms I find groups like this really helpful #chatms |
| A Life Less Traveled @mjwentink @truthbetoldms I've lost quite a bit of weight since my diagnosis. I feel better about myself and am hopeful for the long-term benefits (MS related and otherwise)...but can't say I've noticed any current improvements with my MS #chatms |
| TruthBeTold @truthbetoldms #chatms its crazy but, you will never know the benefits. Becuase you dont know what could have been keep upthe good work |
| John Yellowcard @jyellowcard @truthbetoldms You do not have a choice, you need to stay strong. #chatms |
| Kevin A @Big_in_VA @truthbetoldms I just tough my way through it as I have always doneeven before MS. Occasionally discussing it with close friends just to talk it out the rest of the time I bottle it up inside me. #ChatMS |
| TruthBeTold @truthbetoldms This has been a wonderful conversation. Thanks for the honesty and letting me host. #chatms |
| A Life Less Traveled @mjwentink @truthbetoldms Had a bad case of mono in high school (my theory is that contributed to me developing MS) and I was actually *misdiagnosed* with Crohn's Disease back in 2007 b4 my GI doctor requested an 2nd opinion from The Mayo Clinic where I was ultimately diagnosed with MS #chatms |
| TruthBeTold @truthbetoldms Good night. Dont forget to listen in to https://t.co/aeZ8fApLpS #chatms |
| A Life Less Traveled @mjwentink @truthbetoldms Consider me the 5th. Was misdiagnosed with Crohn's disease first #chatms |
 | Allison @aleck1 @truthbetoldms #chatms A7 I use @Calm for daily meditation and then @happyfeed to write down 3 things I’m grateful for each day. Together these are about 15 minutes and really help |
| John Yellowcard @jyellowcard It was great. Thank you! |
| A Life Less Traveled @mjwentink @Lighty99 @truthbetoldms I wrote about my "three-part theory" of how I developed MS and my high school bout with mono is part of it. Note: Not a doctor 😂 https://t.co/n3GYqdePyu #chatms #notadoctor |
 | Chelle @Chelle_zzz @truthbetoldms A7: family time (ideally outdoors), friends that express empathy and new adventures - basically quality over quantity #chatMS 🧡 |
| A Life Less Traveled @mjwentink @truthbetoldms Walk, exercise, self-meditate, music, jigsaw puzzles, laugh #chatms #dadjokes |
| Allison @aleck1 @truthbetoldms #chatms A8 I use a combination of https://t.co/h951GweoLs, @TheMSGym, and https://t.co/4jdaXgi2Ws to do something every day. Stretching, yoga, exercise, foam rolling. |
#ChatMS content from Twitter.