#ChatMS Transcript
Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Aleyna @AleynaMoreHuman 6pm Central #ChatMS |
 | Must Stop MS! @MustStopMS It’s everyone’s favorite time of the week. It’s #ChatMS time!! |
| Aleyna @AleynaMoreHuman RT @MustStopMS: We are now 5 minutes away from #ChatMS! Whose joining in? All you have to do is search the hashtag to follow along! |
| Must Stop MS! @MustStopMS I won’t be long because we have a special guest host tonight! It’s our good friend and regular #ChatMS attendee Felisha (@felish_a). Be sure to give her a follow! |
| Must Stop MS! @MustStopMS @YouViewIt38 Hi there! #ChatMS |
 | Patty Long @MSenIt4life Oh yeah! It’s time. #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll Wild B...you should use that. #ChatMS |
| Must Stop MS! @MustStopMS .@felish_a is going to be discussing mobility aids with us. She is 31 yrs old and was diagnosed at 28 in Oct 2015 and have been in a wheelchair since. She is on Tysabri, lives in central CA, and love all things puppies, Target, and most sports. #ChatMS |
 | Felisha “the knife in the kidney” 🪴 @felish_a Hi everyone! Thank you so much for joining me tonight! Hope you are all doing well and reading to talk mobility aids! 1sy question coming right up #chatms |
| Must Stop MS! @MustStopMS Hey @felish_a I wont take any more of your time. #ChatMS is all yours!! |
| Felisha “the knife in the kidney” 🪴 @felish_a RT @MustStopMS: .@felish_a is going to be discussing mobility aids with us. She is 31 yrs old and was diagnosed at 28 in Oct 2015 and have been in a wheelchair since. She is on Tysabri, lives in central CA, and love all things puppies, Target, and most sports. #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll Be like “Hi I’m wild B” #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a Q1: Have you ever used a mobility aid? If so what kind? If you are a full time user, what do you use and for how long? #ChatMS |
| Must Stop MS! @MustStopMS @jyellowcard That makes me happy 😊 #ChatMS |
| Must Stop MS! @MustStopMS RT @felish_a: Hi everyone! Thank you so much for joining me tonight! Hope you are all doing well and reading to talk mobility aids! 1sy question coming right up #chatms |
| Patty Long @MSenIt4life RT @felish_a: Hi everyone! Thank you so much for joining me tonight! Hope you are all doing well and reading to talk mobility aids! 1sy question coming right up #chatms |
| Must Stop MS! @MustStopMS RT @felish_a: Q1: Q1: Have you ever used a mobility aid? If so what kind? If you are a full time user, what do you use and for how long? #ChatMS |
| Must Stop MS! @MustStopMS @felish_a A1 - I have not, but I’ve done a little bit of research to help if I get to that point. #ChatMS |
 | John Yellowcard @jyellowcard @felish_a I use a cane inside the house and a walker.. in public I use my scooter.#ChatMS |
| Must Stop MS! @MustStopMS @makkydoll Hahaha #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a A1: I personally am a full time user with mostly a wheelchair and sometimes a walker. I have been using an aid for 3 years #chatms |
| Must Stop MS! @MustStopMS @MSenIt4life @makkydoll It could be Wild B and Wild P! #ChatMS |
| Aleyna @AleynaMoreHuman A1: Since dx I've gone from cane to walker to wheelchair #ChatMS |
| Patty Long @MSenIt4life Yes and No. I chose not to get a wheelchair cause I didn’t have any arms to make it work. Didn’t see the point. As I got the right help, I used whatever was around me to stand, then take a step. Sit. I had nowhere to be. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a Q2: How long after diagnosis did you start using your aid? Was it right away or a gradual decline? #chatms |
| Must Stop MS! @MustStopMS RT @felish_a: Q2: Q2: How long after diagnosis did you start using your aid? Was it right away or a gradual decline? #chatms |
 | christian . @dearest_monster @felish_a @MustStopMS A1 #chatMS canes, forearm crutches and wheelchair. Wheelchair is the daily driver though. |
| John Yellowcard @jyellowcard @felish_a I am on a very small slope MS hill. I keep losing shit but very slowly. #chatms |
| Felisha “the knife in the kidney” 🪴 @felish_a A2: I started using a wheelchair right away since I had a massive flare that ended me up in the hospital for 6 weeks and that has been 3 years ago. #chatms |
| Aleyna @AleynaMoreHuman A2: Gradual decline. Got by using my baby's stroller as a walking aide for almost a year, but then had to switch to a cane #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll Tore it from a spasm?? Ouch! #ChatMS https://t.co/CLnO2ErCcT |
| Felisha “the knife in the kidney” 🪴 @felish_a Q3: Many of us have realized the world is not made for the disabled community. What is one of the most frustrating things about going out in public? #chatms |
| Must Stop MS! @MustStopMS RT @felish_a: Q3: Q3: Many of us have realized the world is not made for the disabled community. What is one of the most frustrating things about going out in public? #chatms |
| Patty Long @MSenIt4life @koffeelover41 @felish_a Good point! I have used and still do at times these sorts of aids. It gives me more control at my joints. Knees & elbows #ChatMS |
| christian . @dearest_monster @felish_a @MustStopMS A2 #chatMS gradual decline, yesrs 9, 10, 11 were with crutches and canes about 12 years after diagnosis came the chair . |
| Felisha “the knife in the kidney” 🪴 @felish_a A3: I think one of the toughest it that things technically work for us but not really. Most bathroom stalls aren't big enough, most ramps suck, parking spots are always handy.. etc and nothing is wheelchair height. EVER #chatms |
| Must Stop MS! @MustStopMS RT @felish_a: A3: A3: I think one of the toughest it that things technically work for us but not really. Most bathroom stalls aren't big enough, most ramps suck, parking spots are always handy.. etc and nothing is wheelchair height. EVER #chatms |
 | Marty Hall @jeanmarh20 @felish_a Hi. A1 I use a rollator, canes and the wheelchair is for trips to drs ofc. #ChatMS |
| Aleyna @AleynaMoreHuman A3: Stairs at the entrances to people's homes. Even lots of ground-level ranch homes have a single ledge or step at the front door. #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll Oh wow!! #ChatMS |
| Marty Hall @jeanmarh20 A2. I started using aids about 4 yrs after diag #ChatMS |
| Must Stop MS! @MustStopMS @Aleynamorehuman A3 - I know I see places that have the handicap accessible signs but it still isn’t easily accessible. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a @jyellowcard don't forget the hashtag Jon so everyone can see your response :) #chatms |
| Must Stop MS! @MustStopMS RT @felish_a: @jyellowcard don't forget the hashtag Jon so everyone can see your response :) #chatms |
| Marty Hall @jeanmarh20 @felish_a A3. Being told a location is wheelchair accessible but it’s not really #Chatms |
| Felisha “the knife in the kidney” 🪴 @felish_a @YouViewIt38 @MustStopMS don't forget to use the hashtag #chatms ! |
| Must Stop MS! @MustStopMS @makkydoll I had my knee dislocated before but never got it checked out. Prolly should have cause it feels weak all the time and I have to wear a brace every now and then too. #ChatMS |
 | YouViewIt (🕸Y💀uB🎃🎃It🕸) 38 MS @YouViewIt38 @MustStopMS #ChatMS At least I was on time...LOL |
| Felisha “the knife in the kidney” 🪴 @felish_a Q4: Are you able to drive or do you depend on others for transportation? #chatms |
| Felisha “the knife in the kidney” 🪴 @felish_a A4: I do not drive since I cannot lift my chair into the car. I am hopefully getting hand controls soon to see if I can go short distances and take my walker #chatms |
| Must Stop MS! @MustStopMS @moorlandTony And you see way too many kids goofing off on them. At least at the local Walmart here. The store says nothing to them. Once group was purposely running into things with them. #ChatMS |
| Must Stop MS! @MustStopMS RT @felish_a: Q4: Q4: Are you able to drive or do you depend on others for transportation? #chatms |
| Patty Long @MSenIt4life @makkydoll I had to leave my walking stick in the car. Told I could use it as a weapon. Mine came from the woods not the store. I reckon it was kinda helpful cause I never got dependent on it before going to PT & stuff. #ChatMS |
| Marty Hall @jeanmarh20 A4 I no longer drive and have to rely on others for transportation #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll That was a few years ago 😂. Prolly should have cause it swelled pretty good. #ChatMS |
| Patty Long @MSenIt4life Right away! #ChatMS |
| Aleyna @AleynaMoreHuman A4: I drove as long as I could, but realized that it was no longer safe so I had to quit. Absolutely the worst loss I've suffered. #ChatMS |
| John Yellowcard @jyellowcard @makkydoll No, no , no, that is your armor. #chatms |
| Felisha “the knife in the kidney” 🪴 @felish_a @H4power @MustStopMS don't forget the hashtag #chatms Hugh :) |
| Patty Long @MSenIt4life @felish_a Where I live they don’t keep you in the hospital for MS. They set you up an outpatient appt for the infusion center. 🙄 That’s why I travel now. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a @MSenIt4life I don't think they usually do here either but I went with my left leg paralyzed and didn't know why sooo... haha I was in a rehab place for 4 of those weeks #chatms |
| christian . @dearest_monster @felish_a A3 #chatMS ramps or lack thereof |
| Patty Long @MSenIt4life @felish_a It’s like the rest of MS though, don’t ya think? Happiness isn’t limited to our ability to walk. Or at least I never thought so. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a @Aleynamorehuman I agree. It is so very hard to give up driving and that independence #chatms |
| Felisha “the knife in the kidney” 🪴 @felish_a @jennaville22 don't forget to include the hashtag #chatms :) |
| John Yellowcard @jyellowcard @makkydoll I drive but I am not sure it’s that good. #chatms |
| Patty Long @MSenIt4life @Aleynamorehuman We fight don’t we! #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a Q5: Do you gets stares and/or questions from strangers when out in public? What has been the worst or most awkward encounter? #chatms |
| Must Stop MS! @MustStopMS RT @felish_a: Q5: Q5: Do you gets stares and/or questions from strangers when out in public? What has been the worst or most awkward encounter? #chatms |
| Patty Long @MSenIt4life Finding handicapped parking places occupied by people without placards! #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a A5: I usually don't get too many questions and I def get more stares with my walker than wheelchair. I always find it weird when someone asks if I need help on the toilet. Like.. do you realized what your offering? #chatms |
| Aleyna @AleynaMoreHuman A5: Interestingly I got more comments with my cane. "You're too young to need a cane." Equal stares with cane and wheelchair. #ChatMS |
| Patty Long @MSenIt4life @felish_a See, these are more issues that I haven’t had to deal with. The hospital whenever I was there immediately put my wheelchair and their stalls etc seemed made right. Sounds amazingly frustrating! ❤️❤️⚔️ #ChatMS |
| Marty Hall @jeanmarh20 @koffeelover41 @felish_a Yeah the stares are one thing that I am learning to ignore. I try to put a brave confident mask on #ChatMS |
| christian . @dearest_monster @felish_a A5 #chatMS I do, but the MS has been apart of me daily for so long I could give zero shits what people say or think. I have to do mine, no time to worry about others not in my life. I'll get questions from time to time and I'll answer |
| John Yellowcard @jyellowcard @felish_a Things aren’t normally awkward and I would look at me too so I understand. #chatms |
 | Kevin A @Big_in_VA @felish_a A1 - yes I currently use a cane at the insistence of my family. #ChatMS Sorry I am late |
| Felisha “the knife in the kidney” 🪴 @felish_a @MSenIt4life generally a medical setting the bathrooms are ok but definitely not in the general public. Its a mess haha #chatms |
| Patty Long @MSenIt4life @koffeelover41 @felish_a I always said let them stare. Told a few I’d be glad to pose for a picture if they wanted. I’m a regular smarta** tho. ❤️⚔️❤️ #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a Q6: How do you handle questions from children about your aids? #chatms |
| Must Stop MS! @MustStopMS @koffeelover41 @felish_a Wow #ChatMS |
| Marty Hall @jeanmarh20 A5 I get the stares from family and friends I haven’t seen in a while #ChatMS |
| Must Stop MS! @MustStopMS RT @felish_a: Q6: Q6: How do you handle questions from children about your aids? #chatms |
| Must Stop MS! @MustStopMS @felish_a Great question! #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a RT @dearest_monster: @felish_a A5 #chatMS I do, but the MS has been apart of me daily for so long I could give zero shits what people say or think. I have to do mine, no time to worry about others not in my life. I'll get questions from time to time and I'll answer |
| Kevin A @Big_in_VA @felish_a A2 - a few months after diagnosis so I guess it was somewhat gradual. #ChatMS |
| Aleyna @AleynaMoreHuman A6: I tell the truth. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a A6: I have a niece that always asks me why I use something (she's 4) and I just tell her I need help walking and it helps me. She just likes playing with my wheels tho ;) #chatms |
| John Yellowcard @jyellowcard @felish_a I hit that little freaking whistle bell thing on my scooter and smile. #chatms |
| Kevin A @Big_in_VA @felish_a A3 - I think doors on commercial buildings can be difficult to hold open with one hand/arm while using the cane. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a @MustStopMS @koffeelover41 thats so awful I am so sorry! no one should be treated like that #chatms |
| Must Stop MS! @MustStopMS A6 - my son was 5 when I was diagnosed and he’s been to every MS walk and has volunteered at other events so he’s groeing up with it. He still asks questions but it’s expected. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a Q7: What was the hardest part about adapting to using your aid? The easiest? #chatms |
| Must Stop MS! @MustStopMS @makkydoll Mini Wild B? #ChatMS |
| Must Stop MS! @MustStopMS RT @felish_a: Q7: Q7: What was the hardest part about adapting to using your aid? The easiest? #chatms |
| John Yellowcard @jyellowcard @dearest_monster @felish_a That has been bookmarked... #chatms |
| christian . @dearest_monster @felish_a @MustStopMS A6 #chatMS been working as a substitute teacher past 2 months and I'm in elementary schools a lot, I get that questions often and I'm just honest with them. I have ms, it does this and affects that, just a quick synopsis. A little girl told me one time, at least you're handsome |
| Kevin A @Big_in_VA @felish_a A4 - Yes I still drive but parking and getting in and out of my truck gets difficult in some parking situations because I won’t get handicap tags yet. A bit to proud for it yet #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a A7: not being able to do everyday things as easily like laundry, showering, getting something to eat, etc.. The best part if probably rolling downhill. That usually makes my friends a little jealous #chatms |
| John Yellowcard @jyellowcard @makkydoll Those are the moments... that are blessed. #chatms |
| Felisha “the knife in the kidney” 🪴 @felish_a @dearest_monster @MustStopMS omg that is so sweet! kids are the best #chatms |
| Aleyna @AleynaMoreHuman A7: Hardest: admitting to myself that I needed it. Easiest: the freedom it gave me. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a Last questions coming up! This went so fast!! #chatms |
| Must Stop MS! @MustStopMS RT @felish_a: Last questions coming up! This went so fast!! #chatms |
| christian . @dearest_monster @felish_a @MustStopMS So very sweet #chatMS |
| Kevin A @Big_in_VA @felish_a A5 - occasionally I do but I just ignore it. I have had many awkward encounters in life before #MS diagnosis so it is nothing to me now. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a Q8: What is one piece of advice you would give to a new mobility aid user or someone who is thinking of getting one? #chatms |
 | Jennifer Rios @jenrios0945 @felish_a @MustStopMS A7: I have been in a motorized chair for about three months now. It is so comfortable! I can’t believe how long I just endured the hardship! #ChatMS |
| Marty Hall @jeanmarh20 A7 I thought people would see I was handicapped. #ChatMS |
| Kevin A @Big_in_VA @felish_a A6 - don’t think I have ever had any from children that I recall. #ChatMS |
| Aleyna @AleynaMoreHuman A8: don't put off getting it if you need it. Not getting it only makes your life suck more. #ChatMS |
| Marty Hall @jeanmarh20 A7. The easiest part was I stopped falling down in the middle of the street #ChatMS |
| Must Stop MS! @MustStopMS RT @Aleynamorehuman: A8: A8: don't put off getting it if you need it. Not getting it only makes your life suck more. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a A lot of ppl see aids as an ending but they truly are not. They help me still enjoy life and this beautiful world. They are my lifelines to the world. You have to do what is best for you and sometimes that requires some help. #chatms |
| Must Stop MS! @MustStopMS A8 - having to use an aid is not a negative thing. Do what you need to do to live a normal life as much as you can. #ChatMS |
| Must Stop MS! @MustStopMS RT @felish_a: A lot of ppl see aids as an ending but they truly are not. They help me still enjoy life and this beautiful world. They are my lifelines to the world. You have to do what is best for you and sometimes that requires some help. #chatms |
| John Yellowcard @jyellowcard @felish_a It wasn’t about adapting to my aids, It was accepting that I needed them. #chatms |
| Must Stop MS! @MustStopMS @makkydoll Haha #ChatMS |
| christian . @dearest_monster @felish_a A6 #chatMS I don't think I really ever learned how to properly use my crutches, I know left arm, left leg, right arm, right leg but I just always feel I'm doing it wrong |
| Kevin A @Big_in_VA @felish_a A7 - learning how to use it to effectively support and assist me when walking was the hardest. The easiest was using to easily reach things on the floor. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a RT @Aleynamorehuman: A8: A8: don't put off getting it if you need it. Not getting it only makes your life suck more. #ChatMS |
| Must Stop MS! @MustStopMS THANK YOU THANK YOU THANK YOU @felish_a for the amazing chat tonight! #ChatMS |
| Aleyna @AleynaMoreHuman Wow SO true!!! #ChatMS |
| John Yellowcard @jyellowcard @MustStopMS He will forever find strength in that. #chatms |
| Aleyna @AleynaMoreHuman @felish_a thanks for a great #ChatMS !!!! ❤️ |
| Kevin A @Big_in_VA @felish_a A8 - Don’t be stubborn about using an aid. It can make your life much easier and solve so many simple problems. #ChatMS |
| Must Stop MS! @MustStopMS You did an amazing job and there are some great responses both here and in the Facebook group. I hope you enjoyed it @felish_a! Everyone give her a round of applause. #ChatMS https://t.co/NJSlrPGGJU |
| Felisha “the knife in the kidney” 🪴 @felish_a AAHH thank you soooo much guys! This was amazing! And many thanks to Randy for letting me host this week. I'm always around to talk more about if anyone would like. Maybe we could do a round two if a few months. Keeping on keeping on everyone #chatms |
| Must Stop MS! @MustStopMS I’m Sticking with the office gifs tonight apparently lol #ChatMS |
| Marty Hall @jeanmarh20 RT @MustStopMS: A8 - having to use an aid is not a negative thing. Do what you need to do to live a normal life as much as you can. #ChatMS |
| Must Stop MS! @MustStopMS RT @felish_a: AAHH thank you soooo much guys! This was amazing! And many thanks to Randy for letting me host this week. I'm always around to talk more about if anyone would like. Maybe we could do a round two if a few months. Keeping on keeping on everyone #chatms |
| Kevin A @Big_in_VA @felish_a That is so so true. #ChatMS |
| christian . @dearest_monster @felish_a A8 #chatMS no shame in it, it's a tool to help you and if people have a problem with that than that's their problem not yours |
| Must Stop MS! @MustStopMS @felish_a We would love to have you back again as a host! If anyone else is interested in hosting #ChatMS one week let me know. It’s easy and a lot of fun! |
| Felisha “the knife in the kidney” 🪴 @felish_a What a crazy hour! I will try to respond to more tweets when I have a moment to look through everything. It's a little chaotic, I give Randy major props for doing this every week, sometimes 3x a week! #chatms |
| John Yellowcard @jyellowcard Thank you!! I could not keep up. #chatms |
| Must Stop MS! @MustStopMS Next week I’m thinking we will do our annual topic of cold/flu season. It’s getting to be that time of year. I hope you have a great week everyone! @felish_a thank you again. You did an amazing job! #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a RT @Big_in_VA: @felish_a A8 - Don’t be stubborn about using an aid. It can make your life much easier and solve so many simple problems. #ChatMS |
| Must Stop MS! @MustStopMS RT @dearest_monster: @felish_a A8 #chatMS no shame in it, it's a tool to help you and if people have a problem with that than that's their problem not yours |
| Felisha “the knife in the kidney” 🪴 @felish_a @makkydoll walking with canes is hard! I tried it out in PT a few months ago and I was like "ummm can I have my wheels back?" lol #chatms |
| Kevin A @Big_in_VA @felish_a Thank you it was fun and a great topic. Sorry I was late I dozed off. Keep up the fight like we all must and stay strong. Thanks to Randy too. #ChatMS |
| Felisha “the knife in the kidney” 🪴 @felish_a @moorlandTony thanks for joining us Tony!! #chatms |
| Felisha “the knife in the kidney” 🪴 @felish_a RT @dearest_monster: @felish_a A8 #chatMS no shame in it, it's a tool to help you and if people have a problem with that than that's their problem not yours |
| Felisha “the knife in the kidney” 🪴 @felish_a @Big_in_VA I had to set an alarm because I usually nap through at least half of the chat lol #chatms |
| Felisha “the knife in the kidney” 🪴 @felish_a Also, last tidbit, yesterday was my 3 year MS-iversary so thanks for having this chat with me. Aids have been a huge part of my life in the past 3 years so getting to talk about them positively means a lot <3 #chatms |
| Must Stop MS! @MustStopMS RT @felish_a: Also, last tidbit, yesterday was my 3 year MS-iversary so thanks for having this chat with me. Aids have been a huge part of my life in the past 3 years so getting to talk about them positively means a lot <3 #chatms |
| John Yellowcard @jyellowcard RT @felish_a: Also, last tidbit, yesterday was my 3 year MS-iversary so thanks for having this chat with me. Aids have been a huge part of my life in the past 3 years so getting to talk about them positively means a lot <3 #chatms |
#ChatMS content from Twitter.