#ChatMS Transcript
Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Must Stop MS! @MustStopMS Ooooh yeeeaahhh it’s #ChatMS time! Who’s ready to talk with boring ok’ me for the next hour??? Click the hashtag to join in. Don’t miss it! https://t.co/Ozdh3tc2BX |
| Must Stop MS! @MustStopMS We are just about a week away from Christmas. Who hasn't started shopping yet??? #ChatMS |
 | Lynne 🇺🇸 @Indy_Lynne RT @MustStopMS: Only 15 minutes til #ChatMS! Retweet if you’re joining us! |
 | John Yellowcard @jyellowcard RT @MustStopMS: Only 15 minutes til #ChatMS! Retweet if you’re joining us! |
| Must Stop MS! @MustStopMS Tonight we are discussing work. MS can take this from us too due to various reasons. Has your ability to work been affected? Let’s talk about it. Question 1 coming right up! #ChatMS https://t.co/rKmZtFQtx6 |
| Must Stop MS! @MustStopMS @makkydoll #ChatMS https://t.co/mBud1InWlC |
 | Jack Jones @sOUners4life RT @MustStopMS: It’s #ChatMS day! Tonight we will be discussing MS and working. MS can affect our ability to continue working. Have you had experience with this? Let’s talk about it tonight at 7pm EST! |
 | Aaron Boster MD @AaronBosterMD RT @iConquerMS: #ChatMS is a twitter discussion that allows people living with #MultipleSclerosis to talk about their experiences dealing with various topics. Just search for the hashtag #ChatMS to participate in the chat on Mondays at 7 pm EST. See you there! |
| Must Stop MS! @MustStopMS Here comes Q1!!! #ChatMS |
| Must Stop MS! @MustStopMS Q1 – One of the most crippling things that can happen with MS is having to quit working. This has impacts on income, mental health, and more. Are you still able to work normally with MS? Not at all? In a modified way? #ChatMS |
 | Nichola L Stephenson @nickystevo RT @MustStopMS: It’s #ChatMS day! Tonight we will be discussing MS and working. MS can affect our ability to continue working. Have you had experience with this? Let’s talk about it tonight at 7pm EST! |
| Jack Jones @sOUners4life RT @MustStopMS: Q1 – One of the most crippling things that can happen with MS is having to quit working. This has impacts on income, mental health, and more. Are you still able to work normally with MS? Not at all? In a modified way? #ChatMS |
 | christian . @dearest_monster @MustStopMS A1 #chatMS I work in a different field then what I studied, but it fits my "schedule" better and definitely more flexible. |
| Must Stop MS! @MustStopMS A1 - I still continue to work normally #ChatMS |
| Jack Jones @sOUners4life RT @MustStopMS: Tonight we are discussing work. MS can take this from us too due to various reasons. Has your ability to work been affected? Let’s talk about it. Question 1 coming right up! #ChatMS https://t.co/rKmZtFQtx6 |
| Must Stop MS! @MustStopMS @YouViewIt38 don't forget the hashtag :) #ChatMS |
 | iConquerMS @iConquerMS @MustStopMS A1 - I left "regular work" and eventually started to work freelance from home so I can work around ALL my needs. #ChatMS |
| John Yellowcard @jyellowcard @MustStopMS No, I had to sell my business... The best decision I ever made. I sold it almost two years ago, if I still owned it today I would just have to close it. #chatms |
| Jack Jones @sOUners4life RT @MustStopMS: A1 - I still continue to work normally #ChatMS |
 | Jim Klu🚗 @jimmyczech I’m still working as I was. Thankfully I type and click all day. #ChatMS |
| John Yellowcard @jyellowcard @anasou63 @MustStopMS I am sorry, that must be awful. #chatms |
 | Mary P. Pettigrew @pettigrew66 RT @MustStopMS: Q1 – One of the most crippling things that can happen with MS is having to quit working. This has impacts on income, mental health, and more. Are you still able to work normally with MS? Not at all? In a modified way? #ChatMS |
| Must Stop MS! @MustStopMS Q2 – If MS has affected your ability to work normally, how long after diagnosis did you have to make the adjustment or quit all-together? #ChatMS |
| Mary P. Pettigrew @pettigrew66 Same as me - #ChatMS |
 | Raguraman B @ragub6 @MustStopMS A1. As pointed out in a webinar, "Loss of Work and Fatigue/Depression is kind of chicken & Egg problem" Hoping to break the cycle #ChatMS |
| iConquerMS @iConquerMS @makkydoll How do you use your makeup diploma? Youtube? #ChatMS |
| John Yellowcard @jyellowcard @MustStopMS A2: I saw the writing on the wall started planning it. #chatms |
| iConquerMS @iConquerMS @pettigrew66 Did you freelance before #MS or did you start after your DX? #ChatMS |
| Must Stop MS! @MustStopMS @pettigrew66 Mary!!!! #ChatMS |
| Raguraman B @ragub6 @MustStopMS A2. Struggled, passed over in career etc - Quit working full time after 11 years of diagnosis #ChatMS P.S: Field is Information Technology, BTW |
| iConquerMS @iConquerMS @MustStopMS A2 - It was fast, probably only about 2 years #ChatMS |
| christian . @dearest_monster @MustStopMS A2 #chatMS it was a good ten years after diagnosis that worked slowed then stopped now with disability and this let's me control my hours, so it works out |
| iConquerMS @iConquerMS @makkydoll Yeah my brother does some Youtube stuff and he started complaining about the payment issues about a year ago. Or maybe longer? I forget but wow, that's awesome! #ChatMS |
| Must Stop MS! @MustStopMS Q3 – Did your employer know you were diagnosed with MS? For those still working, does your current employer know? Did you disclose your diagnosis at time of hire? #ChatMS |
| Mary P. Pettigrew @pettigrew66 @iConquerMS Years after my diagnosis. Took me awhile to figure out who I was supposed to be after old career ending. #ChatMS |
| christian . @dearest_monster @MustStopMS A4 #chatMS no actually 🤪 I never brought it up and wasn't asked why the chair |
| iConquerMS @iConquerMS @MustStopMS A3 - I guess I should mention, about a year after I FIRST stopped working I tried to get back into work but it didn't last long... I told my new employer about my MS and they tried to work with me but my MS was just too unpredictable for me to be able to keep on. #ChatMS |
| Mary P. Pettigrew @pettigrew66 Forgive me guys, but I'll need to be intermittent on Herr tonight due to angry gut flare up. #ChatMS. Kinda feels like this! LOL! https://t.co/fq5nxIbt2C |
 | YouViewIt (🕸Y💀uB🎃🎃It🕸) 38 MS @YouViewIt38 @MustStopMS A2 - Very soon after Dx. I tried going back, tried part time, tried home business, done it all. It is impossible 2 generate enough income 2 survive with the amount of work I can accomplish on a daily basis. After multiple acutes, I finally realized it in about 5 years. #ChatMS |
| YouViewIt (🕸Y💀uB🎃🎃It🕸) 38 MS @YouViewIt38 RT @YouViewIt38: @MustStopMS A2 - Very soon after Dx. I tried going back, tried part time, tried home business, done it all. It is impossible 2 generate enough income 2 survive with the amount of work I can accomplish on a daily basis. After multiple acutes, I finally realized it in about 5 years. #ChatMS |
| Raguraman B @ragub6 @MustStopMS A3 Employersare Politically correct, have policies for people to with degenerative disorders/disability etc But practically, faced discrimination in a subtle manner #ChatMS Kinda like Policy of Sexual harassment - Policy is there but acceptance should come from Individuals |
 | Rick Lorentson @rickejk @MustStopMS A1 Not for 2 years now. I was fortunate that I had purchased long term disability the year I stopped working. #ChatMS |
| iConquerMS @iConquerMS @makkydoll I can't remember the details I just know it was dumb but he did. Anyway, glad you don't have to deal with that too! #ChatMS |
| John Yellowcard @jyellowcard I wish that I had received that advice. #chatms |
| Must Stop MS! @MustStopMS Q4 – If you had to quit the workplace, was this decision yours? Or was this decision suggested by your doctor? Or maybe you employer’s decision? #ChatMS |
| Rick Lorentson @rickejk @MustStopMS A2 17 years. I had it fortunate for a long time. Went from working, to w/cane to not working. #ChatMS |
| YouViewIt (🕸Y💀uB🎃🎃It🕸) 38 MS @YouViewIt38 @MustStopMS A3- Yes. They knew about Dx & made necessary accommodations. #ChatMS |
| Lynne 🇺🇸 @Indy_Lynne @MustStopMS A1 #ChatMS - We had our own business, so were able to accommodate MS. We recently went into a partnership to step out of operations. So far, different, but great! |
| Rick Lorentson @rickejk @MustStopMS A3 I had gone into the hospital for diagnosis, so my employer knew eight away. When changing jobs informed them on the interview. #ChatMS |
| Lynne 🇺🇸 @Indy_Lynne @MustStopMS A2 #ChatMS - Adjust after a couple of years. Fully out of business after 14 years. |
| iConquerMS @iConquerMS @makkydoll Man... that really blows, sorry to hear :/ #ChatMS |
| Raguraman B @ragub6 @MustStopMS A4 Drs encouraged me to work to keep mind engaged. It is the business world that demands Mobility, Cognition & Luck - Decision to quit is not "entirely" mine #ChatMS |
| iConquerMS @iConquerMS @makkydoll Did you quit or get let go or what? #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll 5 miles though. Woot! #ChatMS |
| YouViewIt (🕸Y💀uB🎃🎃It🕸) 38 MS @YouViewIt38 @MustStopMS A4 - trial & error. I figured it out myself, doctors agreed. #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll Note....it says miles and not km even though its Canada....#ChatMS |
| iConquerMS @iConquerMS @makkydoll oh this answers my question haha, #ChatMS |
| Rick Lorentson @rickejk @MustStopMS A4 I went into the hospital w/ cellitius(sp) and when discharged the circumstances led to me not working again. So fate more than anyone else. #ChatMS |
| Must Stop MS! @MustStopMS Q5 – What was the symptom, or symptoms, that led to the ultimate decision of having to quit or modify your work life? #ChatMS |
| iConquerMS @iConquerMS @MustStopMS A4 - First I had to take a leave to deal with a relapse but when certain symptoms weren't getting better I had to call and quit. They were understanding so that was good #ChatMS |
| Rick Lorentson @rickejk @jyellowcard It was just pure luck to be honest. Only year I had purchased it. For once I actually listened to that voice in my head. #ChatMS |
| Raguraman B @ragub6 @MustStopMS A5 - Cognition & Fatigue for me. "You have a Motorised wheelchair now, whats your problem" - question faced #ChatMS |
 | DawnFL59 🌊 @DawnFoss28 @MustStopMS #ChatMS I ended up in the ER immediately following an off-site meeting during which severe symptoms started. I was then admitted and diagnosed the next day, so they knew. They made it quite difficult at times but had to deal with it when I eventually filed FMLA paperwork. |
| iConquerMS @iConquerMS @MustStopMS A5. - First it was my vision and vertigo and then my fatigue just got so severe. Those are the PRIMARY symptoms that got in my way... All together I could barely walk with a cane #ChatMS |
 | Anastasia Soula @anasou63 @MustStopMS A5- walking imbalance #chatms |
 | Smokey The Bear 🐻 @Steelers_VA @MustStopMS A1- luckily I am still working. Striving to keep that my reality. What else is an IT specialist with CASP cert supposed to do? I haven't even begun to try and understand how to be a freelancer or work at home person. Ugh. #MSWarrior #HereWeGo #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll crushing it! #ChatMS |
| Rick Lorentson @rickejk @MustStopMS A5 after being discharged for the Toxic Shock in my foot, I never got back out of the wheelchair. Also had urology issues. #ChatMS |
| iConquerMS @iConquerMS @makkydoll Aw man, they let you go? That is not cool... #ChatMS |
| Must Stop MS! @MustStopMS I've noticed there's quite a few chatters in the IT world lol #ChatMS |
| Must Stop MS! @MustStopMS Q6 – How much did the decision to quit, or modify work, affect your emotional state? #ChatMS |
| John Yellowcard @jyellowcard @MustStopMS A6: I started to fall grabbed a small tree, circled around it with one hand and hit the ground. 4 years ago, I knew then. #chatms |
| Must Stop MS! @MustStopMS It's hard to keep up tonight. This is awesome! #ChatMS |
| DawnFL59 🌊 @DawnFoss28 @MustStopMS Q5 #ChatMS cognitive issues, fatigue and Med side effects made me unpredictable and not performing well. |
| iConquerMS @iConquerMS @makkydoll Wait, they were informed? Your employer? How? #ChatMS |
| Rick Lorentson @rickejk @MustStopMS A6 Now or then? 😀 seriously I was in a big funk right after, but now i am back on the + side. #ChatMS |
 | Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A3 . They know i was working there when I got diagnosed, #ChatMS |
| Must Stop MS! @MustStopMS @luansills #ChatMS https://t.co/1qNRSxWxKS |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A1. I still work but no longer go into the office. I have a home office. Makes it so much easier #ChatMS |
| iConquerMS @iConquerMS @MustStopMS a6 - My emotional state was already terrible given the relapse I was experiencing but of course it was a huge factor in my life with depression. #ChatMS |
| DawnFL59 🌊 @DawnFoss28 @MustStopMS A2 #ChatMS Had to quit 3 years after diagnosis, but my neurologist feels strongly that I was misdiagnosed about 20 years earlier with ankylosing spondylitis. |
| Raguraman B @ragub6 @MustStopMS A6 Best forgotten - Made peace with new normal - Tried to redirect efforts as a freelancer - Strived to keep the mind positive (Was easier said than done then) #ChatMS |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A2. About 11 years after diagnosis is when i started working from home full time #ChatMS |
| DawnFL59 🌊 @DawnFoss28 @MustStopMS A1 #ChatMS I went out on disability three years ago. I loved my job! |
| Must Stop MS! @MustStopMS Q7 – Have you been able to find another source of income? How so? How has this altered the daily life you led? #ChatMS |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A4 the decision to work from home was mine. The commute and office was too much physically. My company supported it. Mostly because they're not ADA compliant at the office lol #ChatMS |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A5 fatigue and foot drop #ChatMS |
| John Yellowcard @jyellowcard @MustStopMS A6: I had to mourn it, I am a whole new person. #chatms |
| iConquerMS @iConquerMS @makkydoll Oh I get it. Man, I don't know how you didn't lose it! I would have had a hard time keeping my cool before I had MS on my plate! #ChatMS |
| Raguraman B @ragub6 @MustStopMS A7 - Did emotional blackmail of my wife (Primary caretaker) to put double the hours in her job to compensate for loss of my income 😜 #ChatMS https://t.co/OwHMMdvbb8 |
| Box lunch & coconut wata 🇯🇲 @TanyaMarie_P A6. It makes it better for me. Keeps me working affords me the ability to do laundry make dr appointments. Its posive #ChatMS |
| Must Stop MS! @MustStopMS RT @ragub6: @MustStopMS A7 - Did emotional blackmail of my wife (Primary caretaker) to put double the hours in her job to compensate for loss of my income 😜 #ChatMS https://t.co/OwHMMdvbb8 |
| iConquerMS @iConquerMS @MustStopMS A7 - Yes, I do freelance work from home, it is a thousand times better than a 9-5 because I can work as much or as little as I want WHEN I want #ChatMS |
| Rick Lorentson @rickejk @MustStopMS A7 I have not, but to be honest I have been lax in looking. But I have tried to stay current with my old profession. I have tried to branch out, but laziness has been involved as well. #ChatMS |
| Must Stop MS! @MustStopMS Q8- What advice can you offer to someone who may be having difficulties at work, may have lost their job due to MS, or those looking for answers regarding disclosing their MS diagnosis to their employer? #ChatMS |
| Rick Lorentson @rickejk @MustStopMS A8 Transparency is usually the best answer for me. But I am oriented that way. As soon as you feel MS affecting your mobility take the LD if you can. #ChatMS |
| iConquerMS @iConquerMS @makkydoll Haha, well sounds like you are back in control so that's good! #ChatMS |
| Must Stop MS! @MustStopMS @HAbenath Ugh! #ChatMS |
| Must Stop MS! @MustStopMS Ok guys bonus question. With the holidays starting next week this will be the last #ChatMS of 2018. What is your goal or resolution for the new year? #ChatMS |
| Raguraman B @ragub6 @MustStopMS A8 - Disclosing MS diagnosis is not an issue, almost all companies have policies, your boss can be understanding, too Try to do small moonlight with some freelance on side and prepare to quit work sooner than you expect Usual #Disclaimers #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll That is awesome!!! Way to go! #ChatMS |
| Must Stop MS! @MustStopMS Everyone, tonight’s #ChatMS was AWESOME! I could barely keep up. Love it! Thank you all so much! |
| iConquerMS @iConquerMS @MustStopMS Simple. My goal is to be in a better place (regarding my health) at the end of next year than I am now #ChatMS |
| Raguraman B @ragub6 @MustStopMS Goal for 2019 - Lose my walker via DMT & PT. Try to find a (need not be high paying) job that allows frequent naps #ChatMS Easier said than done - Lets see 🤞 |
| Must Stop MS! @MustStopMS If you have any suggestions to make #ChatMS better in the new year I’d love to hear any and all suggestions! |
| Must Stop MS! @MustStopMS RT @iConquerMS: @MustStopMS Simple. My goal is to be in a better place (regarding my health) at the end of next year than I am now #ChatMS |
| Rick Lorentson @rickejk @MustStopMS Bonus answer. To stay positive, and make good changes to my current believes. To make up for any shitty choices I made this year. Survive my poor insurance choices this for next year. 😃 #ChatMS |
| Must Stop MS! @MustStopMS Even though there won’t be official #ChatMS sessions for a couple weeks I’ll still be around. If I dont talk to you I hope you all have a Merry Christmas and a Happy New Year! Thank you again! |
| John Yellowcard @jyellowcard @luansills @MustStopMS You should have received an IRS form for social security, it will tell you how much you can expect on it. It can help you in decision making. #chatms |
| John Yellowcard @jyellowcard @luansills @MustStopMS Get a disability lawyer, I considered myself pretty self-assured, learned quick. #chatms |
#ChatMS content from Twitter.