#ChatMS Transcript

Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.

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John Yellowcard @jyellowcard
@makkydoll I do not like buses. So I am not going to take it.#chatms
Must Stop MS! @MustStopMS
Hello all sorry for the delay! It is #ChatMS time!
Must Stop MS! @MustStopMS
Today we are talking about positivity, which can be tough. Question 1 coming right up! #ChatMS
Must Stop MS! @MustStopMS
Q1 – When you think about your MS journey so far, would you say you are handling things in a positive way? #ChatMS
christian . @dearest_monster
@MustStopMS A1 #chatMS sure, do things piss me off; of course they do but it's not living in it that matters. Try to figure out the problem and move on
Keisha Hester @keisha_maree
@MustStopMS A1- I think overall YES! I do what I can to see the rainbows in the storm. But I definitely have bad days. To me, positivity isn’t being false or using empty words. It’s acknowledging the bad... but not drowning in it. #ChatMS
Felisha “the knife in the kidney” 🪴 @felish_a
Not always but over all yes ☺️ #ChatMS
Rick Lorentson @rickejk
@MustStopMS A1 I have always been an optimistic person. So from my diagnosis I have always looked at this is bad but it could be worse. Don't get me wrong I have had down times and wonders why me. But in the long run i have been thankful for what i do have. #ChatMS
Must Stop MS! @MustStopMS
Q2 – Have you had a positive mindset all along? At what point were you able to get there? What helped? #ChatMS
Anastasia Soula @anasou63
@MustStopMS A2- Faith & Yoga help me stay positive #ChatMS
Felisha “the knife in the kidney” 🪴 @felish_a
I think once I realized and accepted this was gonna be a new normal and not go away I was able to get my positive thoughts to work better #ChatMS
John Yellowcard @jyellowcard
@MustStopMS A1- I am nice as long as you do not piss me off... I spend my day riding a scooter everywhere, being as nice as can be.#chatms
Marty Hall @jeanmarh20
@MustStopMS A1 I try not to let dark thoughts take over and focus on enjoyable activities #ChatMS
Rick Lorentson @rickejk
@MustStopMS A2 After 2 years of drop foot and limping through life the diagnosis brought my positively. Now since I recovered from my Fathers death when I was 19. I have a really been a strongly positive person. As my wife said I would find good in Satan #ChatMS
John Yellowcard @jyellowcard
@MustStopMS Faith and the gym and my music.#chatms
christian . @dearest_monster
@MustStopMS A2 #chatMS i would like to say yes. It's almost been 15 years and i can't recall many times when i would of had a, "whoa is me" moment. Took took odd solace in knowing there where people worse off then me
Must Stop MS! @MustStopMS
Q3 – Do you think a positive mind helps lead to a positive life? Why or why not? #ChatMS
John Yellowcard @jyellowcard
RT @rickejk: @MustStopMS A2 After 2 years of drop foot and limping through life the diagnosis brought my positively. Now since I recovered from my Fathers death when I was 19. I have a really been a strongly positive person. As my wife said I would find good in Satan #ChatMS
John Yellowcard @jyellowcard
@MustStopMS Yes. #chatms
Marty Hall @jeanmarh20
@MustStopMS A2 No I have not. It is difficult to break out of it. #ChatMS
Felisha “the knife in the kidney” 🪴 @felish_a
Absolutely!! The mind and it’s thoughts are a fascinating thing. They say misery loves company and I think the opposite is true too. #ChatMS
Keisha Hester @keisha_maree
@MustStopMS A2- overall, yes. But it was much harder at the beginning. #ChatMS
Anastasia Soula @anasou63
@MustStopMS A3- yes because I have faith in god and I do yoga breathing #ChatMS
christian . @dearest_monster
@MustStopMS ARE #chatMS definitely, it's too easy to be down and out with MS but just being upbeat for the sheer sake of it is amazing. I smoke my weed, talk to a therapist and that helps. But not turning to a negative right off the bat helps you and those around you.
John Yellowcard @jyellowcard
It truly is dastardly. #chatms
Rick Lorentson @rickejk
@MustStopMS A3 Always looking for the positive keeps me, I think, grounded. I know how easy it would be to fall on the dark side, but I always try to find the positive in life and emotions. I have seen to often finding the dreary side becomes a self fulfilling prophecy. To me. #ChatMS
Keisha Hester @keisha_maree
@MustStopMS A3- I think anything *helps* but you can’t positivity away your lesions. Some people act like of you just smile your MS will skip away into the sunset 😅 #ChatMS
John Yellowcard @jyellowcard
RT @rickejk: @MustStopMS A3 Always looking for the positive keeps me, I think, grounded. I know how easy it would be to fall on the dark side, but I always try to find the positive in life and emotions. I have seen to often finding the dreary side becomes a self fulfilling prophecy. To me. #ChatMS
Must Stop MS! @MustStopMS
Sorry I’m going to be a little distant in responding tonight. Got some things going on. Gonna have to go to my sons school in the morning to take care of some bully issues. I’m on edge lol #ChatMS
Must Stop MS! @MustStopMS
Q4 – Even the most positive person will have negative moments. What, if anything, helps you turn a negative situation into a positive one? #ChatMS
John Yellowcard @jyellowcard
Well stated: #chatms
Kevin A @Big_in_VA
@MustStopMS A1 - I think so most days. There are days when things make it tough especially when I get to feeling like I am a burden on family and friends even though they tell I am not. #ChatMS
Felisha “the knife in the kidney” 🪴 @felish_a
@keisha_maree @MustStopMS Exactly. I had someone tell me on time that I basically wasn’t willing away my disease enough 🙄 ppl who make comments like that have no idea about our lives 😣 #ChatMS
Marty Hall @jeanmarh20
@MustStopMS A3 Yes being positive helps me because I begin to find solutions to whatever is bothering me #Chatms
John Yellowcard @jyellowcard
@MustStopMS I have sad it once, I say it again, my faith. #chatms
Felisha “the knife in the kidney” 🪴 @felish_a
I try to find a silver lining even if it’s really small. IE it’s so cold rn and I hate it but my silver lining is I get to wear beanies to cover up my bad hair days and not sweat to death #ChatMS
Rick Lorentson @rickejk
@MustStopMS A4 - as I have said there have been down times. When those times arrive my family is there to help me out. They are my rock to keep me knowing there are always better times. Imagine a 3 yo smiling and offering you their favorite stuffed animal. All the negative is gone #ChatMS
Must Stop MS! @MustStopMS
Q5 – Do you find yourself avoiding certain people and/or situations where you know there is a lot of negativity? #ChatMS
christian . @dearest_monster
@MustStopMS A4 #chatMS i don't know if it's a skill but i have this uncanny ability to let shit just go. To just move on. Our time here is too short, why spend it bitching and complaining and angry?
Marty Hall @jeanmarh20
@MustStopMS A4 Usually talking to someone helps even if it doesn’t solve a problem it helps to talk #ChatMS
Rick Lorentson @rickejk
@MustStopMS A5 No not really. As a matter of fact I may be avoided because I try to help them out. 😀😀 I love to spread the joy. I believe MS sucks but that doesn't mean you have to let it dampen your living. #ChatMS
John Yellowcard @jyellowcard
Again: #chatms
Box lunch & coconut wata 🇯🇲 @TanyaMarie_P
A3 absolutely you are what you think #ChatMS
Keisha Hester @keisha_maree
@MustStopMS A4 - crying a lot. Honestly I have to get it out! Then I can move forward. #ChatMS
Kevin A @Big_in_VA
@MustStopMS A2 - no I didn’t. It was scary at first because I didn’t understand the symptoms that led to diagnosis. Once I did got more worried. As I came to understand the impacts and with the support of family and friends I came around plus help from Nuero. #ChatMS
christian . @dearest_monster
@MustStopMS A5 #chatMS sure. I'll listen, give advice but if you don't care and continue the same behavior then i tend to avoid you.
Box lunch & coconut wata 🇯🇲 @TanyaMarie_P
A4 i cry it out and then keep it moving. I also listen to music loud. Count my blessings. Those things help #ChatMS
Felisha “the knife in the kidney” 🪴 @felish_a
I’m too booked to be bothered by any negative nancies out there 😎✌🏽 seriously tho this disease has allowed me to cultivate the ppl I have around me and what I find important enough to do. #ChatMS
John Yellowcard @jyellowcard
I am going to print that out tomorrow and put it in my wallet. #chatms
Box lunch & coconut wata 🇯🇲 @TanyaMarie_P
A5 YES lol #ChatMS
Keisha Hester @keisha_maree
@felish_a @MustStopMS Some days I laugh at them but some day unfortunately they get to me! I start wondering... is there more I could do? It’s not rational but it happens. #ChatMS
Must Stop MS! @MustStopMS
Q6– What tips can you offer to someone who is trying to stay positive, but may be having difficulties? #ChatMS
Box lunch & coconut wata 🇯🇲 @TanyaMarie_P
#ChatMS
Kevin A @Big_in_VA
@MustStopMS A3 - yes it does in spite of any health condition it does. I think it lets you approach things looking for the best outcome possible and focus on what you can do and not on what you can’t do. #chatMS
Box lunch & coconut wata 🇯🇲 @TanyaMarie_P
#ChatMS
Box lunch & coconut wata 🇯🇲 @TanyaMarie_P
#ChatMS .
Keisha Hester @keisha_maree
@MustStopMS A5 - oh my goodness YES. Toward the beginning I would still try to look past that, but I learned that it was hurtful to me. And some people put no effort into not being negative. #ChatMS
Marty Hall @jeanmarh20
A5 Absolutely. I try to give negative people a chance but over time I give up. #ChatMS
Kevin A @Big_in_VA
@MustStopMS Oh so sorry to hear that my friend. That is no fun to deal with we have had to when the kids were in elementary school. Positive thoughts and prayers for y’all. #ChatMS
Box lunch & coconut wata 🇯🇲 @TanyaMarie_P
A6. Pick 1 thing that is good. No matter how small and focus on that #ChatMS
Keisha Hester @keisha_maree
@MustStopMS A6 - my advice is always the same. KNOW YOURSELF. Don’t try to be anyone else’s version of positive. Do what you can to accept what you can’t change and find joy. But do it YOUR way. #ChatMS
Felisha “the knife in the kidney” 🪴 @felish_a
@keisha_maree @MustStopMS Ya it’s definitely hard sometimes especially when it’s well meaning or from someone you really care about. It’s awful to feel like you’re not doing enough to fix yourself when there’s literally nothing to really do sometimes #ChatMS
John Yellowcard @jyellowcard
@MustStopMS A6: One bad day does not mean anything has changed. It may just be one bad day. #chatms
Kevin A @Big_in_VA
@MustStopMS A4 - I simply seek out some my closest friends and talk to them so as not burden my family if at all possible. A few minutes of talking and hug usually fixes me up 95% of the time. #ChatMS
Must Stop MS! @MustStopMS
Q7 – Having MS is not a positive thing, however there are positives that have come from it. What is one positive thing that has come from your diagnosis? Dig deep…they are there! #ChatMS
Rick Lorentson @rickejk
@MustStopMS A6 oh that is difficult. You sort of need to treat negativity like stress. As they say in Disney land 'Let it go' You need to find that positive aspect in your life and cling to it. When life (MS) beats you down, remember that aspect and return to it. #ChatMS
John Yellowcard @jyellowcard
RT @keisha_maree: @MustStopMS A5 - oh my goodness YES. Toward the beginning I would still try to look past that, but I learned that it was hurtful to me. And some people put no effort into not being negative. #ChatMS
Felisha “the knife in the kidney” 🪴 @felish_a
You can start with small kudos to yourself. Like “good job self for brushing your teeth and changing into fresh pants for the day” and move onto bigger things like “I am enough and did my best today” fake it til you make it with those positive affirmations it’ll sink in #chatMS
Kevin A @Big_in_VA
@MustStopMS A5 - Not people but certain situations yes I do avoid them. #ChatMS
Box lunch & coconut wata 🇯🇲 @TanyaMarie_P
A7 it has taught me humility. It has made me appreciate the small things in life more. #ChatMS
John Yellowcard @jyellowcard
@MustStopMS If I was standing in a room and someone walked in then pointed a gun at me and said run or I am going to shoot you. My only choice would be to say then just freaking shoot me. #chatms
Kevin A @Big_in_VA
@MustStopMS A6 - look at the positive things in life you have accomplished so far. Accentuate the positive as the old song from the movie The Jungle Book said. #ChatMS https://t.co/ymnGTiGTYH
Anastasia Soula @anasou63
@MustStopMS A6- Talk with others who have MS #ChatMS
Rick Lorentson @rickejk
@MustStopMS A7- If nothing else u have learned a lot about my self and my body. My diet and negative hobbies have disappeared. Smoking being the last one. 3 years. I've learned if I can fight MS I can fight bad habits. #ChatMS
Felisha “the knife in the kidney” 🪴 @felish_a
I’ve learned so much about life and having empathy for others especially in the chronic illness community. Also meeting @makkydoll on the internet and now being friends has been pretty rad too 👯‍♀️ and all my other twitter friends #ChatMS
John Yellowcard @jyellowcard
RT @rickejk: @MustStopMS A6 oh that is difficult. You sort of need to treat negativity like stress. As they say in Disney land 'Let it go' You need to find that positive aspect in your life and cling to it. When life (MS) beats you down, remember that aspect and return to it. #ChatMS
Smokey The Bear 🐻 @Steelers_VA
@MustStopMS A7 - It has shown me the light in being appreciative for more things. Just holding my kids hands hits deeper into my heart. It has also taught me patience and more humbleness than I would have thought I could have ever had. #MSWarrior #HereWeGo #ChatMS
Must Stop MS! @MustStopMS
Q8 – What is your favorite positive and/or inspiring quote? #ChatMS
Keisha Hester @keisha_maree
@MustStopMS A7 - I learned so much about myself... basically because I had to. But I feel like it made me a better version of who I already was. Just a version that is constantly exhausted 😂 #ChatMS
Marty Hall @jeanmarh20
@MustStopMS A7 Increased awareness and empathy for disabled people and caregivers #chatMS
Kevin A @Big_in_VA
@MustStopMS A7 - there are 2 positive things for me, all the friends and connections I have made across the country and world because of involvement in communities like this. The second because of the impacts of the disease I have been able to lose a significant amount of weight. #ChatMS
Rick Lorentson @rickejk
@MustStopMS A8 God gave us the gift of life; it is up to us to give ourselves the gift of living well. - Voltaire #ChatMS
christian . @dearest_monster
@MustStopMS A6 #chatMS you can choose your reaction to every interaction, be it with people, traffic, or what have you and don't allow someone to control your emotions.
Must Stop MS! @MustStopMS
Thanks for chatting all! I’ll scroll back through and check all notifications later. Sorry I was distant. I’ve got some things to figure out. I will see you all next week! #ChatMS
Mama Cook @CookieWDaCream
RT @MustStopMS: Today we are talking about positivity, which can be tough. Question 1 coming right up! #ChatMS
John Yellowcard @jyellowcard
I like that. #chatms
Felisha “the knife in the kidney” 🪴 @felish_a
My yoga instructor gave me this personal affirmation once: I am strong I am beautiful I am enough. Those words are hard to say to myself sometimes but that’s when I need them the most. My moms fav quote it “it’s just a bad day not a bad life” #ChatMS
Keisha Hester @keisha_maree
A8 - May God grant me the serenity the accept the things I cannot change, the strength to change the things I can, and the wisdom to know the difference. ✨ #ChatMS
John Yellowcard @jyellowcard
RT @MustStopMS: Thanks for chatting all! I’ll scroll back through and check all notifications later. Sorry I was distant. I’ve got some things to figure out. I will see you all next week! #ChatMS
christian . @dearest_monster
@MustStopMS A7 #chatMS everything in my life has lead me to today, right now. All the shitty things, good things lead to today.
christian . @dearest_monster
@MustStopMS A8 #chatMS "All is for the best."
Kevin A @Big_in_VA
@MustStopMS A8 - I gues it is “kindness is the language the deaf can hear and the blind can see” - Mark Twain #ChatMS
#ChatMS content from Twitter.