#DiverseAlz Transcript
Healthcare social media transcript of the #DiverseAlz hashtag.
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See #DiverseAlz Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diverse Alzheimers @DiverseAlz Good day wherever you are and #welcime to #diversealz here to talk about goals, goal setting and dementia |
| Diverse Alzheimers @DiverseAlz Before we start the #diversealz convo on goals, goal setting and dementia, let’s start with our #a2zdementia icebreaker naming a word beginning with G one can associate with dementia. Please say why and introduce yourself if you’d like . |
| Diverse Alzheimers @DiverseAlz @derekfisher2907 Goals scored by Arsenal or Everton (@TommyTommytee18) No. goals achieved by @3NDWG @DementiaAllianc @DementiaVoices YES! After all g is for groups. We’re talking dementia #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Dementia can be a relentless grind tweets @helenfindlay. Yes. The grinder can also be triumphant but the grind can also be so draining. #diversealz |
| Diverse Alzheimers @DiverseAlz G is for great tweets @derekfisher. Will add grateful. Think sometimes there is much to be grateful for and we do see great from many including those grind(ing) #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Two more minutes in the afternoon words - seems g is full of positives and we’ll start the chat. #diversealz what have you got? |
| Diverse Alzheimers @DiverseAlz G is for gift tweets @helenfindlay mentioning people with dementia who have said it has been a gift in some way. Now, see Glorious Opportunity and Dr Jennifer Bute’s work: https://t.co/Ex3GJKNtUK #diversealz #a2zdementia |
 | Chuck @OrangeChuck Joining #diversealz chat now. Hello all. My G word is generosity. I would have made it this far without the kindness & generosity of others. I thought for sure I could handle this myself but always better when others offer help or kind words at least. https://t.co/kKvBMgUKK9 |
| Diverse Alzheimers @DiverseAlz We’ve had word grateful but see how eloquently @mumbythesea describes it with reference to her late mum who many of us got to know over time via Twitter #diversealz |
| Diverse Alzheimers @DiverseAlz Correction. Not gratitude but grateful via @mumbythesea which is even better #diversealz |
| Diverse Alzheimers @DiverseAlz We can also be grateful to many people with dementia teaching us how to live - does that make sense? #pleaseworkitout #diversealz |
| Diverse Alzheimers @DiverseAlz Getting carried away with the G words but let’s start the chat. Keep the G words flowing though! #diversealz |
| Diverse Alzheimers @DiverseAlz Question 1 why set goals around dementia/care? #diversealz |
 | nursesKidONE @nursesKidONE RT @journeyofcareM: @DiverseAlz @ThatVDOVault @willow_lodge @Shedfieldlodge @BubblyNas #DiverseAlz Might be late/unable to join chat today, but goals are good to have & it helps if realistic/desirable to attain. My mother does simple exercises every day. The aim/goal is to keep her able to climb stairs. Stairs=sleeping in her own bedroom. That's her motivation. |
| nursesKidONE @nursesKidONE RT @DiverseAlz: G is our #a2zdementia letter in readiness for #diversealz 8pmGMT/3pmET. What G words can you think of in relation to dementia and why? Suddenly it’s Grandma/grandmother/grandpa/grandad. Thinking intergenerational. |
| nursesKidONE @nursesKidONE RT @DiverseAlz: G is for giving. It’s #diversealz at 8pmGMT/3pmET when we talk Goals and goal setting. We start with our icebreaker - words beginning with letter G that can be associated with dementia (part of our #a2zdementia) We’re working thru alphabet. Join us! |
| Chuck @OrangeChuck Make mom happy and comfortable were my biggest goals as well as maintaining or if possible improving her health and quality of life. #diversealz https://t.co/9g4ffnkZ7X |
| Diverse Alzheimers @DiverseAlz Earlier @bradboyqld had a g word relating to giving the best care possible. Perhaps giving was the word #diversealz |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: Make mom happy and comfortable were my biggest goals as well as maintaining or if possible improving her health and quality of life. #diversealz https://t.co/9g4ffnkZ7X |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: G is for great tweets @derekfisher. Will add grateful. Think sometimes there is much to be grateful for and we do see great from many including those grind(ing) #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: G is for gift tweets @helenfindlay mentioning people with dementia who have said it has been a gift in some way. Now, see Glorious Opportunity and Dr Jennifer Bute’s work: https://t.co/Ex3GJKNtUK #diversealz #a2zdementia |
| Diverse Alzheimers @DiverseAlz Hello everyone on #diversealz @nursesKidONE @mumbythesea @helenfindlay @mathews_orla |
| Chuck @OrangeChuck @DiverseAlz @journeyofcareM I would not be caring for mom if I did not think I was the best person to handle her care & I like to believe the biggest reason I am the best choice is because I want her to be as happy as possible in life. #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Hello everyone on #diversealz @nursesKidONE @mumbythesea @helenfindlay @mathews_orla |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: @DiverseAlz @journeyofcareM I would not be caring for mom if I did not think I was the best person to handle her care & I like to believe the biggest reason I am the best choice is because I want her to be as happy as possible in life. #diversealz |
| Diverse Alzheimers @DiverseAlz Tweet via @OrangeChuck apt for our chat on goals as he explains he believes best placed and best person to provide mum’s care as her happiness at heart. See @mumbythesea @helenfindlay 2. Got a but to this as well but later. #diversealz clue: care homes |
| Diverse Alzheimers @DiverseAlz RT @mathews_orla: |
| Diverse Alzheimers @DiverseAlz A goal can be as simple as to make mum smile today tweets @mathews_orla who goes on to explain other goals/targets #diversealz |
| Diverse Alzheimers @DiverseAlz RT @DeeDavies12: |
| Chuck @OrangeChuck When dad passed, I spoke with my family & everyone believed I was the best option. I was living with them already after my divorce & knew her & her needs the best. So I quit my job I loved because mom needed me & I felt I could handle it. #diversealz https://t.co/vnZYdwnrj0 |
| Diverse Alzheimers @DiverseAlz Goals can help achieve something with purpose tweets @DeeDavies12 #diversealz |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: When dad passed, I spoke with my family & everyone believed I was the best option. I was living with them already after my divorce & knew her & her needs the best. So I quit my job I loved because mom needed me & I felt I could handle it. #diversealz https://t.co/vnZYdwnrj0 |
| Diverse Alzheimers @DiverseAlz Question 2: how could one respond to someone who believes having/setting goals around dementia care is nonsense, that goals are for “more purposeful things”? #diversealz |
| Chuck @OrangeChuck Yes! Not all goals are long term. Sometimes it's good to set a goal especially if you want to accomplish something. "I will get this done so we can be out the door by 4!" or "If the weather is nice this week, I will take her for ice cream." #diversealz https://t.co/JSGo4218pL |
| nursesKidONE @nursesKidONE Hello everyone! #diversealz Guardianship, an expensive legal process in which a court appoints a fiduciary to manage the health &/or finances of a PWD. But many issues arise for PWD & family, incl capacity of PWD, conflicts of interest, & breach of fiduciary duty. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE Hello everyone! #diversealz Guardianship, an expensive legal process in which a court appoints a fiduciary to manage the health &/or finances of a PWD. But many issues may arise for PWD & family, including capacity of PWD, conflicts of interest, & breach of fiduciary duty. |
| Diverse Alzheimers @DiverseAlz Generous and guilt two mega words from @TommyTommytee18 for people with dementia and supporters/caregivers alike? #diversealz |
| Chuck @OrangeChuck @Shedfieldlodge @DiverseAlz @journeyofcareM I admit that my sister in law is a nurse and initially I thought maybe her and my brother may be better for that purpose alone but they also are not around her on a daily basis & while nurses can help, sometimes there is more to care than just knowing medicine. #diversealz |
| Diverse Alzheimers @DiverseAlz Question 2 refers to comment made in a discussion and could be shown to highlight ignorance. Yes. Why not set goals? Is about planning, progression, even stages of life #diversealz |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: @Shedfieldlodge @DiverseAlz @journeyofcareM I admit that my sister in law is a nurse and initially I thought maybe her and my brother may be better for that purpose alone but they also are not around her on a daily basis & while nurses can help, sometimes there is more to care than just knowing medicine. #diversealz |
| Diverse Alzheimers @DiverseAlz Question 3 might be strange putting this under goals but what would the position be if a loved one/ friend needed to go into a care home? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| nursesKidONE @nursesKidONE My goal was to support Mom remaining active in her life as much as possible. It also meant looking for new activities/programs in which we could participate when "friends" & neighbors excluded her from activities. Arts programs at museums was one of those activities. #diversealz |
| Diverse Alzheimers @DiverseAlz A goal could also be non pharmalogical interventions. #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Hello everyone! #diversealz Guardianship, an expensive legal process in which a court appoints a fiduciary to manage the health &/or finances of a PWD. But many issues may arise for PWD & family, including capacity of PWD, conflicts of interest, & breach of fiduciary duty. |
| Diverse Alzheimers @DiverseAlz Guardianship is the G word from @nursesKidONE which deserves question on its own not just because is a g word but because should be a goal along with power of attorney, planning ahead #diversealz |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz It’s only when you set goals that you take notice tweets @TommyTommytee18 #diversealz |
| Diverse Alzheimers @DiverseAlz With goal setting we aren’t talking about anything new and yet it seems to take on another dimension when we add dementia #diversealz |
| Diverse Alzheimers @DiverseAlz Earlier @Shedfieldlodge mentioned they had some ideas about goal setting. Care to share? Also @willow_lodge any views given we have asked about goals re care homes? #diversealz |
| Diverse Alzheimers @DiverseAlz One simple goal has to be to try and be happy/cultivate happiness. So question 4 coming up and by you can guess it #diversealz |
| nursesKidONE @nursesKidONE Mom was a retired school nurse, so a goal I had was to find intergenerational program. Unfortunately, there seemed to be none in her immediate area. I also had to learn difference between social model & medical model for adult day care; social model rare at the time. #diversealz |
| Diverse Alzheimers @DiverseAlz Question 4 somebody asks you what a goal can be whe. It comes to dementia. What would you suggest? #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: A goal could also be non pharmalogical interventions. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz @nchadborn Agree, which is why thought it would make an interesting chat. Like @TommyTommytee18 goals (not Everton) and settings more common than we think so why not in dementia. Just don’t think about it #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Chuck @OrangeChuck I would tell them to try new things and see what PLWD would like. Everyone is different so explore any option you think might be enjoyable for both of you. #diversealz https://t.co/Kbi5FaRfGD |
| Diverse Alzheimers @DiverseAlz @nchadborn Yes. Different ways to view goals and specific areas too from Communication to legal, recreational, medical...#diversealz |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: @DiverseAlz Q3: |
| nursesKidONE @nursesKidONE Correct. I find that professionals may think in terms of goals that are reimbursable by health or long term care insurance coverage in the US. Care partners must begin to think outside the box & push the envelope on these limits, using the appeals process, if needed. #diversealz https://t.co/lREc0M8Obk |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: I would tell them to try new things and see what PLWD would like. Everyone is different so explore any option you think might be enjoyable for both of you. #diversealz https://t.co/Kbi5FaRfGD |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| Chuck @OrangeChuck Mom doesn't walk so well these days so that may limit us a bit but when weather is nice, we can go for car rides, hair appointments, or as I teased @TommyTommytee18 about even just grab some ice cream together. Mom loves it. #diversealz https://t.co/Kbi5FaRfGD |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: Mom doesn't walk so well these days so that may limit us a bit but when weather is nice, we can go for car rides, hair appointments, or as I teased @TommyTommytee18 about even just grab some ice cream together. Mom loves it. #diversealz https://t.co/Kbi5FaRfGD |
| Diverse Alzheimers @DiverseAlz Question 5 can you give any examples of unreasonable goals? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE Exactly. I was told what to expect, but my goal was to figure out what was really going on with my mom. None of the expectations set by the APS caseworker and the doctors, including a geriatrician, seemed to fit. #diversealz https://t.co/JLgVJohUv6 |
| Diverse Alzheimers @DiverseAlz Question 5 is dependent on circumstances and conditions so look forward to answers #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Exactly. I was told what to expect, but my goal was to figure out what was really going on with my mom. None of the expectations set by the APS caseworker and the doctors, including a geriatrician, seemed to fit. #diversealz https://t.co/JLgVJohUv6 |
| Diverse Alzheimers @DiverseAlz Tweet from @nursesKidONE is about figuring out what was going on, which became a goal. Can also be about enabling as well as knowledge, learning, practices #diversealz |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz Think when comes to people with dementia the goal should never be about dis-abling them #diversealz. Time line seems to agree with this |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Chuck @OrangeChuck There is a goal I set and regret it. "I will be able to handle this myself if nobody will volunteer to help! I'll show dad that I am capable of doing it and honor his memory." I lasted over 2 years & when things started failing, my anxiety became an issue. #diversealz https://t.co/hU11zWsGaT |
| nursesKidONE @nursesKidONE Getting an accurate diagnosis would be a start. Not just "dementia" & don't assume memory loss or cognitive impairment. #diversealz https://t.co/R3fBupwERQ |
| nursesKidONE @nursesKidONE RT @helenfindlay: @DiverseAlz Q4: |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: There is a goal I set and regret it. "I will be able to handle this myself if nobody will volunteer to help! I'll show dad that I am capable of doing it and honor his memory." I lasted over 2 years & when things started failing, my anxiety became an issue. #diversealz https://t.co/hU11zWsGaT |
| Diverse Alzheimers @DiverseAlz True. Goals have to be realistic for carers or caregivers/supporters of people with dementia too. See @OrangeChuck #diversealz |
| nursesKidONE @nursesKidONE RT @OrangeChuck: I would tell them to try new things and see what PLWD would like. Everyone is different so explore any option you think might be enjoyable for both of you. #diversealz https://t.co/Kbi5FaRfGD |
| Diverse Alzheimers @DiverseAlz Valid point from @TommyTommytee18 which borders on stereotypes. Who says people with dementia can’t set goals. Another word surely is achievement. Even attainment. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Getting an accurate diagnosis would be a start. Not just "dementia" & don't assume memory loss or cognitive impairment. #diversealz https://t.co/R3fBupwERQ |
| nursesKidONE @nursesKidONE RT @DiverseAlz: @nchadborn Yes. Different ways to view goals and specific areas too from Communication to legal, recreational, medical...#diversealz |
| Diverse Alzheimers @DiverseAlz Goal can surely be as @nursesKidONE pointing out an accurate diagnosis. #diversealz |
| nursesKidONE @nursesKidONE RT @Shedfieldlodge: |
| Diverse Alzheimers @DiverseAlz @Shedfieldlodge @helenfindlay Would also suggest research and reading up as much as possible about care homes and having a list of requirements. Also look for homes that specialise in dementia care. #diversealz. Seems time for another how to choose a care home chat #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE I also tell people that they have to monitor care provided by others in a residential home or in a private home & that they can expect it to be almost as time consuming as being the care partner, unless they are lucky to find the right place/people. #nevereasy #diversealz https://t.co/49N6BWcni2 |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz Any questions? #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz Question 6 what will you take from this chat (hope it got you thinking about goals and goal settings) and any questions? #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
#DiverseAlz content from Twitter.