#DiverseAlz Transcript
Healthcare social media transcript of the #DiverseAlz hashtag.
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See #DiverseAlz Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diverse Alzheimers @DiverseAlz Good evening. Welcome to #diversealz |
 | Alzheimer Society TO @AlzToronto The #diversealz chat is starting! Join in using the hashtag for today's topic: https://t.co/ePTtvXtd7o |
| Diverse Alzheimers @DiverseAlz We're here to talk about written and visual portrayals about dementia in the media #diversealz |
 | JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Welcome to you all incl @AlzToronto @nursesKidONE #diversealz |
| Diverse Alzheimers @DiverseAlz Question 1 why is media portrayal a big issue? #diversealz |
 | GIFT Cafe Chester @GIFTCafeChester RT @TommyTommytee18: |
| GIFT Cafe Chester @GIFTCafeChester RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
 | AlzAuthors @AlzAuthors RT @TommyTommytee18: |
| AlzAuthors @AlzAuthors RT @DiverseAlz: We're here to talk about written and visual portrayals about dementia in the media #diversealz |
 | nursesKidONE @nursesKidONE RT @DiverseAlz: We're here to talk about written and visual portrayals about dementia in the media #diversealz |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Welcome @TommyTommytee18 who tells us he is living with, not "suffering" from dementia. More on the S word later. #diversealz |
| Diverse Alzheimers @DiverseAlz Dementia Words Matter guidance from @DementiaVoices https://t.co/pI0OpIyHPB |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: @DiverseAlz Q1: |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Alzheimer Society TO @AlzToronto The media, in part, determines how we talk about a subject & what we know about it, generally. #diversealz *lp https://t.co/k64pXOO5Rd |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Alzheimer Society TO @AlzToronto RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz Influence is keyword coming out at the moment. Would like to add information to that. #DiverseAlz |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: The media, in part, determines how we talk about a subject & what we know about it, generally. #diversealz *lp https://t.co/k64pXOO5Rd |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @helenfindlay: @DiverseAlz Q1: |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| nursesKidONE @nursesKidONE RT @AlzToronto: The media, in part, determines how we talk about a subject & what we know about it, generally. #diversealz *lp https://t.co/k64pXOO5Rd |
| Diverse Alzheimers @DiverseAlz Question 2 via @nchadborn how do newstories and pictures affect people with dementia...will add and others perceptions? #diversealz |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz See here https://t.co/9gwxHCRetq |
| Alzheimer Society TO @AlzToronto This is true! The media should not always be seen as having a negative impact-- can shine light on big issues. #diversealz *lp https://t.co/iVtNJz2OaL |
| AlzAuthors @AlzAuthors RT @DiverseAlz: A picture paints a 1000 words. What do some images in publications tell us about dementia? #diversealz 8pmGMT/3pmET @AlzToronto |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 @TommyTommytee18 It said on our TVs today that early onset Alzheimer's affects 4% of the population of UK #DiverseAlz |
| nursesKidONE @nursesKidONE Hello everyone! #diversealz |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Alzheimer Society TO @AlzToronto Great question-- one I have asked before, too. There is no definitive answer here. #diversealz *lp https://t.co/1uAxMVNDzr |
| Diverse Alzheimers @DiverseAlz Dementia guidelines via Fight Dementia is an excellent resource on language: https://t.co/83Ag6RLn1w #diversealz #media |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 @TommyTommytee18 You're certainly not helpless Tommy. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Communications https://t.co/DCwM0QLObz |
| Diverse Alzheimers @DiverseAlz Social media mentioned by @helenfindlay indeed dementia related organisations all related as printed material/visuals #DiverseAlz |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @helenfindlay: @DiverseAlz Q1: |
| Diverse Alzheimers @DiverseAlz We have @AlzToronto on board. How do you approach your publicity/how you prepare information- brochures etc. Considerations? #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE Can use media 2 manipulate/increase fear: 1) of getting a disease; 2) in people who have it. Maybe 2 fundraise &/or sell meds? #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Can use media 2 manipulate/increase fear: Can use media 2 manipulate/increase fear: 1) of getting a disease; 2) in people who have it. Maybe 2 fundraise &/or sell meds? #DiverseAlz |
| Diverse Alzheimers @DiverseAlz See these points https://t.co/ac3TXFLN0q |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Can use media 2 manipulate/increase fear: Can use media 2 manipulate/increase fear: 1) of getting a disease; 2) in people who have it. Maybe 2 fundraise &/or sell meds? #DiverseAlz |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Dementia guidelines via Fight Dementia is an excellent resource on language: Dementia guidelines via Fight Dementia is an excellent resource on language: https://t.co/83Ag6RLn1w #diversealz #media |
| Alzheimer Society TO @AlzToronto @DiverseAlz Some from @AlzCanada. AST specifically works as a team to identify harmful language, aims to be open, positive, helpful #diversealz *lp |
| Diverse Alzheimers @DiverseAlz Will get back to some points but language appears to be key and the sensationalising of dementia at that So... #DiverseAlz |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Alzheimer Society TO @AlzToronto @DiverseAlz We respond very earnestly, & aren't afraid of dialogue. We also have advisory committees of ppl with #dementia & caregivers. #diversealz *lp |
| Diverse Alzheimers @DiverseAlz Question 3:what kind of words/images does one object to and why? Cc @TommyTommytee18 #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Look...good practice https://t.co/d6FESBiJoT |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: @DiverseAlz We respond very earnestly, & aren't afraid of dialogue. We also have advisory committees of ppl with #dementia & caregivers. #diversealz *lp |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: @DiverseAlz Some from @AlzCanada. AST specifically works as a team to identify harmful language, aims to be open, positive, helpful #diversealz *lp |
| Alzheimer Society TO @AlzToronto @nchadborn @dementiaboy Ugh, yes. Those are all some super negative examples & seem to be based in fear/stigma. #diversealz *lp |
| Alzheimer Society TO @AlzToronto This! We see so many notices about "miracle cures" with no real evidence (coconut oil, anyone?!). Can be very crushing. #diversealz *lp https://t.co/bCTpXCApF2 |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 @TommyTommytee18 Aww bless you. I'm glad you got the right support. We will always be here for you, while ever you are on here #diversealz |
| Diverse Alzheimers @DiverseAlz Notice one needs to be consistent with language when highlighting words that are inappropriate and this is via some gatekeepers #DiverseAlz |
| nursesKidONE @nursesKidONE Would like media to understand that symptoms of dementias vary; not limited to memory! #DiverseAlz https://t.co/mKze62Yd1p |
| Alzheimer Society TO @AlzToronto We avoid "patient," "suffering," "loved one." It all really comes down to person-centred care and dignity. #diversealz *lp https://t.co/0pjVTyn2ZA |
| Diverse Alzheimers @DiverseAlz @nchadborn Fight as sure you know is metapbor heavily used with illness and as descriptor needs to change or just for some health issues #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Alzheimer Society TO @AlzToronto RT @nursesKidONE: Would like media to understand that symptoms of dementias vary; not limited to memory! #DiverseAlz https://t.co/mKze62Yd1p |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: We avoid "patient," "suffering," "loved one." It all really comes down to person-centred care and dignity. #diversealz *lp https://t.co/0pjVTyn2ZA |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Would like media to understand that symptoms of dementias vary; not limited to memory! #DiverseAlz https://t.co/mKze62Yd1p |
| Alzheimer Society TO @AlzToronto This is a very interesting perspective on the "battle" language we often see when talking about #dementia: https://t.co/tbyXeB6Mw9 |
| Diverse Alzheimers @DiverseAlz Knowledge counts and seeing how important this is given the different types of dementia - Alzheimer's is one type #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Patient mentioned by @AlzToronto - difficult one? #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Language can be stigmatising we know this but where does problem/difficulty lie with dementia? #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
 | Alzheimer Society of Canada @AlzCanada Hey @DiverseAlz @AlzToronto did you see our recent blog post on #language around #dementia? https://t.co/VAMzvFNTkp #diversealz https://t.co/uGBbBwdvZA |
| Alzheimer Society TO @AlzToronto @DiverseAlz @TommyTommytee18 More to avoid: associating #Alzheimers with growing old. It is NOT synonymous with being old & you can get it at young age! #diversealz *lp |
| nursesKidONE @nursesKidONE @nchadborn @DiverseAlz Isn't it an effective metaphor for fundraising in connection with a disease? https://t.co/v7KbdMrzob |
| Diverse Alzheimers @DiverseAlz RT @AlzCanada: Hey @DiverseAlz @AlzToronto did you see our recent blog post on #language around #dementia? https://t.co/VAMzvFNTkp #diversealz https://t.co/uGBbBwdvZA |
| Alzheimer Society TO @AlzToronto @DiverseAlz It has such a clinical connotation; makes sense that a medical professional would say this but we don't & why should news? #diversealz *lp |
| nursesKidONE @nursesKidONE @nchadborn @DiverseAlz Isn't it an effective metaphor for fundraising in connection with a disease? #DiverseAlz https://t.co/v7KbdMrzob |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: @DiverseAlz @TommyTommytee18 More to avoid: @DiverseAlz @TommyTommytee18 More to avoid: associating #Alzheimers with growing old. It is NOT synonymous with being old & you can get it at young age! #diversealz *lp |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: @DiverseAlz It has such a clinical connotation; makes sense that a medical professional would say this but we don't & why should news? #diversealz *lp |
| Diverse Alzheimers @DiverseAlz @nchadborn Lots of arguments for the word fight and will find there could also be cultural connotations #diversealz @nursesKidONE |
| Alzheimer Society TO @AlzToronto @BME_Dementia @DiverseAlz @TommyTommytee18 As we provide counselling for families, we try to respect that relationships can be complicated-- heard feedback about it. #diversealz *lp |
| Alzheimer Society TO @AlzToronto RT @AlzCanada: Hey @DiverseAlz @AlzToronto did you see our recent blog post on #language around #dementia? https://t.co/VAMzvFNTkp #diversealz https://t.co/uGBbBwdvZA |
| Alzheimer Society TO @AlzToronto @nursesKidONE @nchadborn @DiverseAlz It is very effective for fundraising. What does that say? #diversealz *lp |
| Diverse Alzheimers @DiverseAlz There will be cultural connotations linked to some words. something to bear in mind. Think "loved ones" cc @BME_Dementia #diverseAlz |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: @nursesKidONE @nchadborn @DiverseAlz It is very effective for fundraising. What does that say? #diversealz *lp |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz Respect https://t.co/hZLdGenN5q |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Anyone have anything to say about visuals? Think canbe depressing sometimes. Wrinkly hands popular. Stereotype and laziness. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @BME_Dementia: |
| Diverse Alzheimers @DiverseAlz See this https://t.co/QC7qLthEQl |
| Diverse Alzheimers @DiverseAlz RT @BME_Dementia: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz @BME_Dementia Know this to be case in some other languages too. #diversealz. Thanks for highlighting Urdu |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
 | Alert1 Medical Alert @Alert1MedAlert Images and words used to define dementia influence the media portrayal and vice versa. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE @nchadborn In US (& elsewhere) the baby boomers "fought" polio by lining up for vaccines & it was eradicated. So same approach to ALZ. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Good point via @Shahid_MoSardar misleading headlines also mentioned by @helenfindlay re: cures #diverseAlz |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @trainingcarers: |
| Diverse Alzheimers @DiverseAlz once pointed out that one source of displeasing news story came via a press release copied almost verbatim by media outlet #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Alzheimer Society TO @AlzToronto RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE Vacant eyes is another common visual. #diversealz https://t.co/zzd6ewzSdV |
| Diverse Alzheimers @DiverseAlz @Shahid_MoSardar @nchadborn The way that some stories are covered or not also affect perceptions. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Vacant eyes is another common visual. #diversealz https://t.co/zzd6ewzSdV |
| Diverse Alzheimers @DiverseAlz Look https://t.co/TlsXASHqhO |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Vacant eyes is another common visual. #diversealz https://t.co/zzd6ewzSdV |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Lack of reporting in some communities can lead to notion they do not get dementia #diversealz |
| Diverse Alzheimers @DiverseAlz Visual mentioned by @nursesKidONE vacant eyes. Add to wrinkly hands and what does that say. One story. #diversealz |
| Diverse Alzheimers @DiverseAlz Question 6: where can we get good stories? #diverseAlz |
| Diverse Alzheimers @DiverseAlz We are talking about dementia words, images and perceptions of dementia. Media a big point but not only one #DiverseAlz |
| nursesKidONE @nursesKidONE Or when people ("friends ") walk away while a PLWD is trying 2 speak/answer. Giving people your time is an expression of love. #DiverseAlz https://t.co/Id1cPIYGgi |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz The @DementiaVoices mentioned by @TommyTommytee18 for its work but how do you get buy in? #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE @nchadborn Well, what about US campaigns that speak of ending/finding cure for ALZ by 2020 or 2025. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz We are painting a Stereotypical story on #diversealz of people with dementia based on "common" reporting and visuals |
| Alzheimer Society TO @AlzToronto Yes! We're tired of seeing these images, too. It certainly does not represent the joy & vibrancy we see in our programs! #diversealz https://t.co/73WA6dNwUy |
| Diverse Alzheimers @DiverseAlz Do read https://t.co/CNpXGrKjkb |
| Diverse Alzheimers @DiverseAlz One thing to overcome is notion of forgetfulness as if automatic and dismissing many ppl w dementia. #diversealz. C @TraceyShorty28 tweets |
| Diverse Alzheimers @DiverseAlz Respect https://t.co/1DTrZIvuUv |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: Yes! We're tired of seeing these images, too. It certainly does not represent the joy & vibrancy we see in our programs! #diversealz https://t.co/73WA6dNwUy |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: This is a very interesting perspective on the "battle" language we often see when talking about #dementia: This is a very interesting perspective on the "battle" language we often see when talking about #dementia: https://t.co/tbyXeB6Mw9 |
| nursesKidONE @nursesKidONE You want a doctor to listen to the patient at the 15 minute appointment allowed by the US healthcare system? #diversealz https://t.co/U3fxjgAXFx |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Dementia makes great stories... but when negative can be upsetting. Also think of children and young people #DiverseAlz #fear |
| Diverse Alzheimers @DiverseAlz Finally, can campaigns around language help? #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Missing or not prominent stories: BAME, BME, CALD, LGBT and people with young onset dementia #DiverseAlz |
| nursesKidONE @nursesKidONE But in commercials, after they take the expensive medicine, they play with their grands & have good times with their families. #diversealz https://t.co/DzatRqLpmE |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz Will be interesting to see where coverage of @OpeningDoorsLdn #lgbtdementia event will appear or feature. Aim for Rainbow Cafe #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
 | RaisingAwarenessBot @AwarenessBot RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz @nchadborn Yes but once saw references to "vermin" etc that despite the...we must challenge rhetoric was not picked up. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz So still we are talking about raising awareness. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz You are asked to head a group looking at language and how dementia is perceived. What would you do? #DiverseAlz |
| Diverse Alzheimers @DiverseAlz @TommyTommytee18 @helenfindlay @nursesKidONE you head a task five looking at language, visuals and perceptions dementia. Action #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz What we see with some communities is that it is about perseverance, correction, coaxing. #diversealz #BAME |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
#DiverseAlz content from Twitter.