#DiverseAlz Transcript

Healthcare social media transcript of the #DiverseAlz hashtag.
().
See #DiverseAlz Influencers/Analytics.

ProfileTweet
Diverse Alzheimers @DiverseAlz
Good day wherever you are. #diversealz here to talk about dementia and communities with the addition of a word that says much. Worth
Diverse Alzheimers @DiverseAlz
Please feel free to introduce yourselves adding why you are interested in this topic. #diversealz. We tend to chat and chat and learn to know and interact with each other as we go along.
Diverse Alzheimers @DiverseAlz
We start, as always with an icebreaker that doesn’t ask you to say who you are unless you want to. It is out #a2zdementia. What words can you associate with the letters XYZ. Some or all three in relation to dementia? #diversealz
Diverse Alzheimers @DiverseAlz
Z is for zigzagging journey @journeyofcareM tweets. #a2zdementia #DiverseAlz
Diverse Alzheimers @DiverseAlz
Could be a quiet #diversealz tonight but let’s start the chat. Please continue to add your #a2zdementia words
S Olson, B.S, J.D. @ThatVDOVault
My alternate choice is Youthful or Young at Heart (a Y word) because 1) it is a good attitude to have while #caregiving a person living with #dementia 2) it is how I feel now that my task of parental care is well done. #DiverseAlz
Diverse Alzheimers @DiverseAlz
Chat tonight is inspired by @TommyTommytee18 who in response to #a2zdementia w word tweeted worthless. Suddenly thought about dementia and while concept of worth. So here is question 1. #DiverseAlz
Diverse Alzheimers @DiverseAlz
Question 1 what role do communities have to play re:dementia and have you ever thought how worth fits in? #diversealz
Diverse Alzheimers @DiverseAlz
RT @DeeDavies12:
Diverse Alzheimers @DiverseAlz
Worth can underpin so much in society and of course can be seen as a value. How much do we as a community/society value people with dementia or their supporters/carers/family. There’s something to think about #diversealz
Caroline @journeyofcareM
@DiverseAlz @TommyTommytee18 #DiverseAlz Society has a lot of silent, and sometimes quite blatant too stipulations/expectations/tolerance of worth for its citizens. Parameters are narrowing more and more. Everyone, everything is affected.
Diverse Alzheimers @DiverseAlz
RT @helenfindlay:
Diverse Alzheimers @DiverseAlz
RT @journeyofcareM: @DiverseAlz @TommyTommytee18 #DiverseAlz Society has a lot of silent, and sometimes quite blatant too stipulations/expectations/tolerance of worth for its citizens. Parameters are narrowing more and more. Everyone, everything is affected.
Diverse Alzheimers @DiverseAlz
RT @LynnGamble20:
Diverse Alzheimers @DiverseAlz
RT @DeeDavies12:
Diverse Alzheimers @DiverseAlz
RT @helenfindlay:
Diverse Alzheimers @DiverseAlz
RT @TommyTommytee18:
Diverse Alzheimers @DiverseAlz
RT @TommyTommytee18:
Caroline @journeyofcareM
@DiverseAlz #diverseAlz There are different communities (social, personal, political etc) that have different roles and can deal differently with issues. An example, carers see the worth in better healthcare systems, engagement , society might not see the worth. Worth can mean £/$ .
Caroline @journeyofcareM
@DeeDavies12 @DiverseAlz I love that word - ZEST ! #diverseAlz
Diverse Alzheimers @DiverseAlz
Where to begin with the next question as taking your tweets as the lead. So much to pick up on from self worth via @ThatVDOVault valuing worth as carer @LynnGamble20 and dementia friends @helenfindlay and still to get to @marep and others! #diversealz
Diverse Alzheimers @DiverseAlz
Question 2: What can or should we expect from communities - this links everyones points so far, quite nicely. @TommyTommytee18 has hinted days of neighbourliness almost, if not, over #diversealz
S Olson, B.S, J.D. @ThatVDOVault
@LynnGamble20 @DiverseAlz Well I am uppity & somehow work to force others to see the worth of both #carers #caregivers #carepartners AND people living with #dementia There are multiple ways to measure worth & so I shift the unit of measure away from the most commonly used one(s) #DiverseAlz
Diverse Alzheimers @DiverseAlz
RT @helenfindlay:
Diverse Alzheimers @DiverseAlz
See @MAREP_UW reminding us of the importance of community understanding. Still, that message needs to get out there. As an aside, wondering if it is being heard enough? #diversealz
Caroline @journeyofcareM
@TommyTommytee18 @DiverseAlz #diverseAlz This is off topic but emblematic of how technology is affecting our lives as a day ago I read that more children are drowning because parents are on their smartphones !! What's is up with us humans ????
Diverse Alzheimers @DiverseAlz
Social media mentioned by @helenfindlay can be WORTHwhile and yet, at same time, can have negatives. That said, we have a nice question 3 on that, but not yet. That's the inject positive into convo, not that it isn't! #diversealz
Diverse Alzheimers @DiverseAlz
RT @helenfindlay:
Diverse Alzheimers @DiverseAlz
RT @journeyofcareM: @TommyTommytee18 @DiverseAlz #diverseAlz This is off topic but emblematic of how technology is affecting our lives as a day ago I read that more children are drowning because parents are on their smartphones !! What's is up with us humans ????
Diverse Alzheimers @DiverseAlz
This from @nigel8812922 on importance of interacting RT: Engaging with us and giving us a voice, and access to facilities and mechanisms and being recognised, valued as contributing members of civil society. #diversealz
Diverse Alzheimers @DiverseAlz
Please keep question 2 in back of your mind and will be monitoring but let's go to question 3, which picks up on social media the change is coming phrase from @TommyTommytee18 and worth. This underpins chat #diversealz
Caroline @journeyofcareM
@helenfindlay @DiverseAlz @TommyTommytee18 #diverseAlz A mixed blessing for sure. I was told by a someone that I never write long emails to them anymore, or email much at all...since, I have to say joining Twitter. It's a wider connection, can be personal or not...I'm still grappling with it power....
Diverse Alzheimers @DiverseAlz
First going to highlight the worth of everyone on here. Infact, how are you worthy, what is your value re: dementia which should be a question 3a. One of those reflective questions #diversealz
Diverse Alzheimers @DiverseAlz
Question 3: There are lots of worthy people doing things around dementia in background (especially) and at the front. Yet again, can we light up the timeline with some names and why? #diversealz.
Diverse Alzheimers @DiverseAlz
@TommyTommytee18 @helenfindlay @Shedfieldlodge @MAREP_UW @journeyofcareM @CLW_MH @nigel8812922 @ThatVDOVault @LynnGamble20 What's your dementia worth? This is one of those reflective questions you get sometimes #diversealz
Diverse Alzheimers @DiverseAlz
RT @journeyofcareM: @helenfindlay @DiverseAlz @TommyTommytee18 #diverseAlz A mixed blessing for sure. I was told by a someone that I never write long emails to them anymore, or email much at all...since, I have to say joining Twitter. It's a wider connection, can be personal or not...I'm still grappling with it power....
C.Hazelwood. Author @richardmcoates
RT @DiverseAlz: Social media mentioned by @helenfindlay can be WORTHwhile and yet, at same time, can have negatives. That said, we have a nice question 3 on that, but not yet. That's the inject positive into convo, not that it isn't! #diversealz
Diverse Alzheimers @DiverseAlz
For anyone following this conversation on Twitter, a reflective question for you. What is your dementia worth? #diversealz @nursesKidONE @derekfisher2907 @nchadborn
C.Hazelwood. Author @richardmcoates
RT @DiverseAlz: Where to begin with the next question as taking your tweets as the lead. So much to pick up on from self worth via @ThatVDOVault valuing worth as carer @LynnGamble20 and dementia friends @helenfindlay and still to get to @marep and others! #diversealz
C.Hazelwood. Author @richardmcoates
RT @DiverseAlz: Good day wherever you are. #diversealz here to talk about dementia and communities with the addition of a word that says much. Worth
C.Hazelwood. Author @richardmcoates
RT @journeyofcareM: @helenfindlay @DiverseAlz @TommyTommytee18 #diverseAlz A mixed blessing for sure. I was told by a someone that I never write long emails to them anymore, or email much at all...since, I have to say joining Twitter. It's a wider connection, can be personal or not...I'm still grappling with it power....
Diverse Alzheimers @DiverseAlz
Question 4: Community spirit is a great but how can one inject it with dementia in mind. Acknowledge dementia friends but what else? #diversealz
Caroline @journeyofcareM
@helenfindlay @DiverseAlz @TommyTommytee18 #DiverseAlz Social media is an amazing community in itself and for many, like Tommy, Wendy , they are using it to great benefit. And I wonder if any study is being done to see the effects of it on dementia. I would guess it helps quite a bit in many ways.
Diverse Alzheimers @DiverseAlz
As we discuss communities, dementia and worth, again we go back to value. Now, within that value is respect. A concept the late Aretha Franklin immortalised in song. #diversealz
Diverse Alzheimers @DiverseAlz
We have an answer to 3a, what is your dementia worth from @ThatVDOVault RT #DiverseAlz A3a Priceless. As in I am not sure how you set my value, but I think my experiences with #dementia & #caregiving have been something I could not possibly set a price on. 1/2
Diverse Alzheimers @DiverseAlz
A3a via @ThatVDOVault The personal development though hard has been worthwhile. Remember #diversealz ers, this is a reflective question. @LynnGamble20 noted her value as a carer #diversealz
Diverse Alzheimers @DiverseAlz
we live among you tweets @TommyTommytee18 referring to communities and links to dementia #diversealz
Diverse Alzheimers @DiverseAlz
And yet... we have communities, pockets or not, where dementia is calling but does not want to be admitted. Is this a fair assumption? Any thoughts @CLW_MH #diversealz
Diverse Alzheimers @DiverseAlz
This self reflection on worth via @TommyTommytee18 is, to use @ThatVDOVault word today, priceless MT: Mine was a wake up call that there are people out there that need their fellow peers to speak up & take action for them #diversealz
Diverse Alzheimers @DiverseAlz
RT @LynnGamble20:
Diverse Alzheimers @DiverseAlz
Surely one of the answers to question 4 about injecting community spirit is about being creative? Care homes could be encouraged to open up their homes to the community with safety in mind of course and do so beyond care home open day #diversealz Some do and have initiatives
Diverse Alzheimers @DiverseAlz
Question 6 Society may be judged at the moment or communities on how they treat people with dementia... is this a fair statement? #diversealz
Diverse Alzheimers @DiverseAlz
Our question 6 is a biggie drawing on something many have mentioned today. Stigma and how this can also lead to feelings of worthlessness for some people with dementia. #diversealz
Diverse Alzheimers @DiverseAlz
Bestselling author and dementia advocate @WendyPMitchell mentions worth in her book several times. Value too. It's as much about reclaiming self worth and value as it is life with dementia. #diversealz
Caroline @journeyofcareM
@TommyTommytee18 @DiverseAlz #DiverseAlz Yes education is so important & all of us involved in any way with dementia can do our bit. I find that some ppl when socialising with mom just do not engage with her so I bring her back into the conversation in some way. By ignoring her she loses worth. That hurts.
Diverse Alzheimers @DiverseAlz
RT @journeyofcareM: @TommyTommytee18 @DiverseAlz #DiverseAlz Yes education is so important & all of us involved in any way with dementia can do our bit. I find that some ppl when socialising with mom just do not engage with her so I bring her back into the conversation in some way. By ignoring her she loses worth. That hurts.
Bikerwise @bikerwise
RT @LynnGamble20:
Diverse Alzheimers @DiverseAlz
RT @helenfindlay:
Init4Health #CaithClúdachAghaidhe #SábháilBeathaí. @Init4Health
@DiverseAlz @helenfindlay Q3 #diversealz 2 great examples (1) @ARTZHEIMERS1 raising awareness of dementia/alzheimers via art https://t.co/EgYa6aDvPH & (2) @memorytriggers creating archive film based #memorytrigger resources to aid reminiscence/conversation https://t.co/xkAgFNx0hd
Diverse Alzheimers @DiverseAlz
RT @Shedfieldlodge:
Caroline @journeyofcareM
@DiverseAlz #DiverseAlz Well the Canadian society doesn't treat the elderly very well at all. And with dementia, it's probably like everywhere, a lottery depending on the values of the family members which are often at odds. A hard truth.
Diverse Alzheimers @DiverseAlz
RT @journeyofcareM: @DiverseAlz #DiverseAlz Well the Canadian society doesn't treat the elderly very well at all. And with dementia, it's probably like everywhere, a lottery depending on the values of the family members which are often at odds. A hard truth.
#DiverseAlz content from Twitter.