#DiverseAlz Transcript
Healthcare social media transcript of the #DiverseAlz hashtag.
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See #DiverseAlz Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diverse Alzheimers @DiverseAlz Welcome to #diversealz |
| Diverse Alzheimers @DiverseAlz Chatting about advance care planning and end of life care esp.as @Marriecurie report highlights lack of specialist support #diversealz |
| Diverse Alzheimers @DiverseAlz Hoping to hear from @helenfindlay too who provided a comment on #mariecurie report , which is on their website #diversealz |
| Diverse Alzheimers @DiverseAlz Let's get to it. A simple but valid question is up as number 1 #diversealz |
| Diverse Alzheimers @DiverseAlz Question 1: How do you start the conversation about advance care and dementia...? #diversealz |
 | nursesKidONE @nursesKidONE RT @DiverseAlz: Chatting about advance care planning and end of life care esp.as @Marriecurie report highlights lack of specialist support #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz From here, think when you read about lack of specialist support and think about potential scenarios, you wonder and talk #diversealz |
| Diverse Alzheimers @DiverseAlz Link to Marie Curie report https://t.co/pEiKRuTXVO |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
 | Alzheimer Society TO @AlzToronto On the topic of end of life care, those in Toronto should attend our next #ASTSpeakerSeries Oct 4: https://t.co/KSUg2q9i0h #diversealz |
| Diverse Alzheimers @DiverseAlz Look https://t.co/WY5YiDzthv |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Look https://t.co/hFVGSmz8ZH |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: @DiverseAlz Q1: |
| Diverse Alzheimers @DiverseAlz Valid point from @helenfindlay for many. How does one know about advance planning of professionals do not raise it? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @DeeDavies12: |
| Alzheimer Society TO @AlzToronto @helenfindlay @DiverseAlz All great questions! We have a few workshops for PWD and families that guide them through the full care planning process. #diversealz |
| Diverse Alzheimers @DiverseAlz Welcome @DeeDavies12 who mentions how upsetting the issue can be for some #diversealz |
| nursesKidONE @nursesKidONE RT @AlzToronto: On the topic of end of life care, those in Toronto should attend our next #ASTSpeakerSeries Oct 4: On the topic of end of life care, those in Toronto should attend our next #ASTSpeakerSeries Oct 4: https://t.co/KSUg2q9i0h #diversealz |
| Diverse Alzheimers @DiverseAlz Workshops... https://t.co/gPxZklY7GE |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: @helenfindlay @DiverseAlz All great questions! We have a few workshops for PWD and families that guide them through the full care planning process. #diversealz |
| Diverse Alzheimers @DiverseAlz One solution in operation from @AlzToronto workshops, which they offer. #diversealz |
| Alzheimer Society TO @AlzToronto Care planning is certainly best discussed early, keeping the wishes of the PWD in the centre of decisions. #diversealz *lp https://t.co/B9PlyuNbWA |
| Diverse Alzheimers @DiverseAlz Rolenof staff in care homes are key https://t.co/YwhjVal6TA |
| Alzheimer Society TO @AlzToronto @DiverseAlz We have "Care in the Later Stages," "LTC Planning" & "Moving to LTC" as another series, as well as "Late & End Stage Dementia" #diversealz |
| Diverse Alzheimers @DiverseAlz @Minghowriter @helenfindlay Seeing residents in care homes can get people wondering what will happen as dementia progresses. (Not all jones) #diversealz |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| nursesKidONE @nursesKidONE It's even more complex when it's raised by a doctor or other provider with whom you don't already have a trusting relationship. #diversealz https://t.co/8TFMZpICWK |
| Diverse Alzheimers @DiverseAlz Pain management mentioned by @TommyTommytee18 with that dignity. Reason to start conversations #Diversealz |
| Diverse Alzheimers @DiverseAlz See this. https://t.co/EWfVAstEvn |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: @DiverseAlz We have "Care in the Later Stages," "LTC Planning" & "Moving to LTC" as another series, as well as "Late & End Stage Dementia" #diversealz |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz Question 2 coming up drawing on @AlzToronto care in rhe later stages programme (please tell us more and anyone else ) #diversealz |
| nursesKidONE @nursesKidONE Yes. Continuity of care can help to build the trust needed to discuss Advanced Planning and EOL care issues. #diversealz https://t.co/eQ0GkuDXxH |
| Diverse Alzheimers @DiverseAlz Question 2: how much does@one hear about care in the later stages? #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Alzheimer Society TO @AlzToronto @helenfindlay @DiverseAlz Yes, completely agree. And then add in navigating the care system, and it can be very overwhelming. #diversealz *lp |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: @helenfindlay @DiverseAlz Yes, completely agree. And then add in navigating the care system, and it can be very overwhelming. #diversealz *lp |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Alzheimer Society TO @AlzToronto Our "Care in Later Stages" workshops are an opportunity to train families about the care system, available options, processes... #diversealz https://t.co/S1ESA7gZq2 |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: Our "Care in Later Stages" workshops are an opportunity to train families about the care system, available options, processes... #diversealz https://t.co/S1ESA7gZq2 |
| Diverse Alzheimers @DiverseAlz Think many people still grasp with idea of dementia or diagnosis and then, depending circumstance, forward planning can sound...#Diversealz |
| nursesKidONE @nursesKidONE I received phone call requesting DNR at 2:00 am from 2nd year resident who couldn't answer my question about a relevant test. #diversealz https://t.co/6XTKBWW9tM |
| nursesKidONE @nursesKidONE RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz Will be tweeting questions so please dip in and out! #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz Look https://t.co/KIi3TCMkQA |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Yes. Continuity of care can help to build the trust needed to discuss Advanced Planning and EOL care issues. #diversealz https://t.co/eQ0GkuDXxH |
| Diverse Alzheimers @DiverseAlz Relationships matter https://t.co/SOwZsqnWzV |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz Holistic care needed https://t.co/tjVGJxjrup |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Alzheimer Society TO @AlzToronto RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz Understanding dementia still matters? https://t.co/OO1UCDdhXi |
 | Second Childishness @2ndChildishness RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @AlzToronto: Our "Care in Later Stages" workshops are an opportunity to train families about the care system, available options, processes... #diversealz https://t.co/S1ESA7gZq2 |
| Second Childishness @2ndChildishness RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Question 3 Could stigma play a role in this or, excuse pun, notion wishing one ill!? #diversealz |
 | billshankly💙 @williamshankly RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Relationships matter https://t.co/SOwZsqnWzV |
| billshankly💙 @williamshankly RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz A3 Remember a time with some family members that could. Ot talk about death (oh, you want me dead". Now, convos starting #Diversealz |
| Diverse Alzheimers @DiverseAlz Seen that softly softly approach can be needed but dementia isn't necessarily time dependent #Diversealz |
| billshankly💙 @williamshankly RT @TommyTommytee18: |
| billshankly💙 @williamshankly RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| nursesKidONE @nursesKidONE Are most physicians sufficiently trained to understand/know progression and later stages of patients w/different dementias? #Diversealz https://t.co/tDBufaB6aM |
| nursesKidONE @nursesKidONE RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz How much do doctors know about dementia https://t.co/gMCRSegv8L |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Are most physicians sufficiently trained to understand/know progression and later stages of patients w/different dementias? #Diversealz https://t.co/tDBufaB6aM |
| Diverse Alzheimers @DiverseAlz Good point from @nursesKidONE that are doctors knowledgeable in this area?#diversealz. Just drs? |
| Diverse Alzheimers @DiverseAlz Question 4 are care homes equipped (back to difference nursing and residential care homes) even hospices (notion go to pass on) #Diversealz |
| Diverse Alzheimers @DiverseAlz Look https://t.co/Wdjj3wpagt |
 | Bidi Iredale @SweetMems RT @TommyTommytee18: |
| Bidi Iredale @SweetMems RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz time https://t.co/lQbVVzOjJc |
| nursesKidONE @nursesKidONE A3. There is a reluctance of most people to talk about death & EOL issues BEFORE receiving ANY Dx, which is better, IMO. #Diversealz https://t.co/Hrp9KmFxRX |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz Know what person with dementia wants suggests @TommyTommytee18 #diversealz mAny relatives admit don't know |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: A3. There is a reluctance of most people to talk about death & EOL issues BEFORE receiving ANY Dx, which is better, IMO. #Diversealz https://t.co/Hrp9KmFxRX |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz @2centscorner Hello! #diversealz would be kind of "scary" if notnised to these kind of conversations. We chat everything here! Almost. |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz Question 5: has anyone ever seen a campaign on thiis issue, could it garner interest? #diversealz |
| nursesKidONE @nursesKidONE “Honest discussion?” There are too many undisclosed professional conflicts of interest in the US health care system. #Diversealz https://t.co/cMPVU3EBvd |
| Diverse Alzheimers @DiverseAlz Trying to see how much coverage the Marie Curie report got #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz @2centscorner Hello. This is a #diversealz conversation |
| nursesKidONE @nursesKidONE I add nurse-practitioners to the physicians responsible 4 directing a patient's care & social workers coordinating resources . #diversealz https://t.co/UhCvAOQNpH |
| Diverse Alzheimers @DiverseAlz Sure other tweetchats such as #alzchat (Mondays) and the @ALZGLA chat (weds) can play roles. #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: I add nurse-practitioners to the physicians responsible 4 directing a patient's care & social workers coordinating resources . #diversealz https://t.co/UhCvAOQNpH |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
 | 2centscorner @2centscorner @DiverseAlz 😊 Oops! #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| 2centscorner @2centscorner #diversealz https://t.co/Izixp4PXtE |
| Diverse Alzheimers @DiverseAlz Keep seeing the word dying every so often. This is what we are talking about, isn't it - the run up to? #diversealz |
| 2centscorner @2centscorner #diversealz https://t.co/xWIsAwKrJD |
| Diverse Alzheimers @DiverseAlz Question 6: what are we really talking about here (something for you to think about...) #diversealz |
| Diverse Alzheimers @DiverseAlz Realities? https://t.co/4DSBNa5Ob8 |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Can't imagine getting diagnosis to the Be told and about your advance care or end of life plans....#diversealZ |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Yes. @helenfindlay reminding us we are also talking about living. @TommyTommytee18 tweeted importance Dignity #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| 2centscorner @2centscorner @DiverseAlz From what I've witnessed, most conversations are limited to Life Ins, funeral arrangements, and MOLST. #Diversealz |
 | ASDNC @AlzScotDNC RT @helenfindlay: |
| ASDNC @AlzScotDNC RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE From my experiences as care partner, it was much easier for me to initiate these convos w/ my loved ones BEFORE health crisis. #diversealz https://t.co/QHsLrHZD7S |
| Diverse Alzheimers @DiverseAlz Question 7: what can you take away from the chat? #diversealz |
| Diverse Alzheimers @DiverseAlz A7 @nursesKidONE asking if there can be honest discussions. Would like to know from care home perspectives. #Diversealz |
| nursesKidONE @nursesKidONE Absolutely NOT true! #diversealz https://t.co/dNRXO8itBd |
| Diverse Alzheimers @DiverseAlz Reminder from @helenfindlay of Findlay Report that it is also about living not just end of life care. #diversealz |
| 2centscorner @2centscorner RT @nursesKidONE: Are most physicians sufficiently trained to understand/know progression and later stages of patients w/different dementias? #Diversealz https://t.co/tDBufaB6aM |
| nursesKidONE @nursesKidONE Absolutely NOT true when ANY loved one is in residential care or a hospital! #diversealz https://t.co/dNRXO8itBd |
| Diverse Alzheimers @DiverseAlz In fragmented pathways @Shahid_MoSardar talks about end of life care for mother or lack of. Also cultural considerations #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| 2centscorner @2centscorner RT @DiverseAlz: Valid point from @helenfindlay for many. How does one know about advance planning of professionals do not raise it? #diversealz |
| Diverse Alzheimers @DiverseAlz A7 realisation that service proviso could be limited and care too. #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Something is also saying need to be in right place at the right time. Home seems preferable though specialist care not #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Marie Curie report (UK) found 99% of people with dementia not getting the specialist care they need. Service launched in Norfolk #diversealz |
| Diverse Alzheimers @DiverseAlz RT @LizAllibone: |
| 2centscorner @2centscorner RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Caring for people at the end of their lives via Marie Curie https://t.co/WYqJ4zpnK8 #diversealz. NB Not new report |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
#DiverseAlz content from Twitter.