#DiverseAlz Transcript
Healthcare social media transcript of the #DiverseAlz hashtag.
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See #DiverseAlz Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diverse Alzheimers @DiverseAlz Welcome to #diversealz here to talk about carers and self care |
| Diverse Alzheimers @DiverseAlz Carers and self care such an important subject for @TommyTommytee18 that he's going to interrupt football match to join. Mega #diversealz |
 | 2centscorner @2centscorner RT @DiverseAlz: @2centscorner @nursekidsone @DawnMGibson Caring for the carer - how can it be achieved? #diversealz today 3pmET |
| Diverse Alzheimers @DiverseAlz Who's on board as we chat about carers and self care? #diversealz |
 | Alzheimer Society TO @AlzToronto Self-care is crucial, espcially when you care for someone else. Join in the chat using #diversealz. https://t.co/xrtDsjSM6z |
| Diverse Alzheimers @DiverseAlz Welcome @AlzToronto for info and experiences from others and always good to have a "@2centscorner" #diversealz |
| Diverse Alzheimers @DiverseAlz Question 1: why bother about self care, after all some carers do not. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: Self-care is crucial, espcially when you care for someone else. Join in the chat using #diversealz. https://t.co/xrtDsjSM6z |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Alzheimer Society TO @AlzToronto Self-care can be the difference between being able to continue with daily life and being too burnt out. #diversealz *lp https://t.co/HBPkDzNPJY |
| Diverse Alzheimers @DiverseAlz Self care is crucial tweets @AlzToronto Question 1 is asking why #diversealz |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Diverse Alzheimers @DiverseAlz See this... https://t.co/lMBv8bikyK |
| 2centscorner @2centscorner @DiverseAlz It’s the old airplane story: you have to put the mask on yourself first. #diversealz |
| Diverse Alzheimers @DiverseAlz An airplane story https://t.co/CRBlsWqdIT |
| Diverse Alzheimers @DiverseAlz RT @2centscorner: @DiverseAlz It’s the old airplane story: @DiverseAlz It’s the old airplane story: you have to put the mask on yourself first. #diversealz |
| Alzheimer Society TO @AlzToronto FYI for caregivers in #Toronto: mindfulness and pet therapy sessions are happening this month! Info: https://t.co/JlOUl8Uhqx #diversealz |
| Diverse Alzheimers @DiverseAlz Also if you don't look after yourself...who will look after loved one or person you are responsible for? #diversealz |
 | Bikerwise @bikerwise @DiverseAlz #diversealz Will try to be, phone permitting. |
| Diverse Alzheimers @DiverseAlz Question 2:what kind of things can people do to take care of themselves? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
 | Dawn M Gibson @DawnMGibson RT @DiverseAlz: Also if you don't look after yourself...who will look after loved one or person you are responsible for? #diversealz |
| Diverse Alzheimers @DiverseAlz @nchadborn We're getting to that as is very much of the caregiving process still. One doesn't give up. #diversealz |
| 2centscorner @2centscorner @DiverseAlz Caregiving is labor intensive, sometimes w/long hrs; must make time to fuel mind, body, and soul. #diversealz |
| Alzheimer Society TO @AlzToronto RT @2centscorner: @DiverseAlz Caregiving is labor intensive, sometimes w/long hrs; must make time to fuel mind, body, and soul. #diversealz |
| 2centscorner @2centscorner RT @Shedfieldlodge: |
| 2centscorner @2centscorner RT @helenfindlay: |
| Bikerwise @bikerwise @DiverseAlz #diversealz I find blogging really good for marshaling my thoughts. |
| Diverse Alzheimers @DiverseAlz @nchadborn You'll see on the timeline in run up to this convo that careworkers included and people with folk in care homes #diversealz. |
| Alzheimer Society TO @AlzToronto Book respite for a day. Relax at home. Read. Go out for dinner. Watch movies. Do art. Go to museum. Spa day. Weekend trip. #diversealz https://t.co/1L3GSZ8MzV |
| Dawn M Gibson @DawnMGibson A2: Keep ties with your life before care giving. It can be as hard as dealing with dementia. #DiverseAlz https://t.co/wtqhKUdQ2v |
| Diverse Alzheimers @DiverseAlz @nchadborn @Shedfieldlodge too though expect many answers #diversealz. |
| Diverse Alzheimers @DiverseAlz Keep ties with your life https://t.co/E8xxksM4Tt |
| Diverse Alzheimers @DiverseAlz RT @DawnMGibson: A2: A2: Keep ties with your life before care giving. It can be as hard as dealing with dementia. #DiverseAlz https://t.co/wtqhKUdQ2v |
| Dawn M Gibson @DawnMGibson A2: Remember that your health is worth spending money. #DiverseAlz https://t.co/wtqhKUdQ2v |
| 2centscorner @2centscorner RT @DawnMGibson: A2: A2: Keep ties with your life before care giving. It can be as hard as dealing with dementia. #DiverseAlz https://t.co/wtqhKUdQ2v |
| Diverse Alzheimers @DiverseAlz RT @DawnMGibson: A2: A2: Remember that your health is worth spending money. #DiverseAlz https://t.co/wtqhKUdQ2v |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: @DiverseAlz Not a straight answer, but an old post in general about the consequences: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Bikerwise @bikerwise @AlzToronto #diversealz Going to watch a film is good. Can be done together if it is the right film, each getting own benefit. |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Dawn M Gibson @DawnMGibson A1: None of us deserve to die or have years taken off of our lives just because someone got sick. #DiverseAlz https://t.co/F5JCXM5ImM |
| Dawn M Gibson @DawnMGibson RT @Minghowriter: @DiverseAlz Not a straight answer, but an old post in general about the consequences: |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: Book respite for a day. Relax at home. Read. Go out for dinner. Watch movies. Do art. Go to museum. Spa day. Weekend trip. #diversealz https://t.co/1L3GSZ8MzV |
| Diverse Alzheimers @DiverseAlz Respite care https://t.co/Mh2M5kVDGI |
| Alzheimer Society TO @AlzToronto @bikerwise That could absolutely be true. And that option won't be right for everyone-- this is all so unique to the individuals. *lp #diversealz |
| Dawn M Gibson @DawnMGibson RT @AlzToronto: Book respite for a day. Relax at home. Read. Go out for dinner. Watch movies. Do art. Go to museum. Spa day. Weekend trip. #diversealz https://t.co/1L3GSZ8MzV |
| Dawn M Gibson @DawnMGibson RT @bikerwise: @DiverseAlz #diversealz I find blogging really good for marshaling my thoughts. |
| Bikerwise @bikerwise @DawnMGibson #diversealz Is keeping ties good? I felt it was better to day new chapter and turn page. Avoids resentment. |
| Diverse Alzheimers @DiverseAlz If as caregiver one could learn and practice mantra health is wealth...ideas may open up or commitment to finding ways #diversealz |
| Diverse Alzheimers @DiverseAlz RT @DawnMGibson: A1: A1: None of us deserve to die or have years taken off of our lives just because someone got sick. #DiverseAlz https://t.co/F5JCXM5ImM |
| 2centscorner @2centscorner @DiverseAlz Make sure to stay up-to-date with regular medical/dental/eye appointments. #diversealz |
| Alzheimer Society TO @AlzToronto @Shedfieldlodge Very true! These are some ideas, but we recognize that it changes person to person. *lp #diversealz |
| Diverse Alzheimers @DiverseAlz Stay on top of health checks https://t.co/X413OXI6Yb |
| Dawn M Gibson @DawnMGibson I had escape nightmares, some guilt, but know that we couldn't go on. #DiverseAlz https://t.co/BfRPWPtddj |
| Alzheimer Society TO @AlzToronto Great point! It's important to stay caught up on these appointments as a caregiver, too. *lp #diversealz https://t.co/QZteuPSY1p |
| Bikerwise @bikerwise @AlzToronto @Shedfieldlodge #diversealz Can sometimes do these activities with caree but with someone else to share burden. Can feel like a day off! |
| Dawn M Gibson @DawnMGibson Seeing how much better the #MemoryCare manages his health makes me feel good. #DiverseAlz https://t.co/BfRPWPtddj |
| Diverse Alzheimers @DiverseAlz Question 3: self care can be difficult. Are there ways to make it less so? #diversealz |
 | Chuck @OrangeChuck ASK FOR HELP!!! I almost waited until it was too late and my anxiety was starting to ruin me. #diversealz https://t.co/lJpwHMuPSL |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
 | nursesKidONE @nursesKidONE @DiverseAlz Hello everyone! Sorry to be late joining #diversealz chat today! |
| Alzheimer Society TO @AlzToronto Another way you can get some self-care if you're in #Toronto: call us at 416-322-6560 to get in touch with a counsellor #diversealz |
| Diverse Alzheimers @DiverseAlz Sleep is up there among the most important things one can and should do regularly and ca. Be hard with PWD esp. of one works too #diversealz |
| Dawn M Gibson @DawnMGibson The #MemoryCare staff help us process our situation. They care about us too. #DiverseAlz https://t.co/BfRPWPtddj |
| 2centscorner @2centscorner RT @Minghowriter: |
| Chuck @OrangeChuck It's harder than you think sometimes. You can easily become obsessed with their care and lose yourself. #diversealz https://t.co/2Ovi4tBIv5 |
| Diverse Alzheimers @DiverseAlz One idea is to try and sleep when PWD sleeps. Not always perfect solution but...#diversealz |
| Diverse Alzheimers @DiverseAlz Losing yourself https://t.co/Z0j6s4BDgz |
| Diverse Alzheimers @DiverseAlz Mega and important keyword two from @OrangeChuck "losing yourself". How do you find yourself. Not easy #Diversealz |
| Alzheimer Society TO @AlzToronto RT @OrangeChuck: It's harder than you think sometimes. You can easily become obsessed with their care and lose yourself. #diversealz https://t.co/2Ovi4tBIv5 |
| Chuck @OrangeChuck Sleep is important but also difficult at times because your brain overthinks or PWD wakes as you're just about to sleep. #diversealz https://t.co/OrBjG0Ru1f |
| Diverse Alzheimers @DiverseAlz Advice lines https://t.co/UqRekN6dOJ |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: Another way you can get some self-care if you're in #Toronto: Another way you can get some self-care if you're in #Toronto: call us at 416-322-6560 to get in touch with a counsellor #diversealz |
| Bikerwise @bikerwise @Minghowriter @DiverseAlz #diversealz I find social time hard because friends forget I cannot just easily rearrange, care arrangements need sorting. |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: Great point! It's important to stay caught up on these appointments as a caregiver, too. *lp #diversealz https://t.co/QZteuPSY1p |
| nursesKidONE @nursesKidONE RT @AlzToronto: Self-care can be the difference between being able to continue with daily life and being too burnt out. #diversealz *lp https://t.co/HBPkDzNPJY |
| Dawn M Gibson @DawnMGibson 100%. The uncertainty around mood & behavior is hard to look away from. #DiverseAlz https://t.co/QXwfILLRgH |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: Sleep is important but also difficult at times because your brain overthinks or PWD wakes as you're just about to sleep. #diversealz https://t.co/OrBjG0Ru1f |
| Alzheimer Society TO @AlzToronto Ask for help, from Alz Society, family, friends, if possible. Try to schedule self-care in & prioritize. Seek counselling. #diversealz *lp https://t.co/HrF3jAQz13 |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Also if you don't look after yourself...who will look after loved one or person you are responsible for? #diversealz |
| Diverse Alzheimers @DiverseAlz Look re: keeping ties https://t.co/TzLSDN4Nnz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Dawn M Gibson @DawnMGibson Maybe with good alarms & escape plan. #DiverseAlz https://t.co/5vUYPyhv57 |
| Bikerwise @bikerwise @Minghowriter @DiverseAlz #diversealz Really good point. |
| Chuck @OrangeChuck I'm still working on it honestly but having family living with us helps so i can get out & try at least. #diversealz https://t.co/0ls4saMEyg |
| Diverse Alzheimers @DiverseAlz Respite care mentioned via @AlzToronto so important people know more about this. Dementia cafes too #Diversealz |
| Dawn M Gibson @DawnMGibson A3: I insisted on keeping up with baseball & having weekly pizza night. #DiverseAlz https://t.co/7YFsLlie0C |
| Alzheimer Society TO @AlzToronto Joining a regular peer support group might be part of a solution for this. https://t.co/ejgG05slsL #diversealz https://t.co/ntjDFqWLYl |
| Diverse Alzheimers @DiverseAlz Work in progress https://t.co/TdwfKTwLJW |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: I'm still working on it honestly but having family living with us helps so i can get out & try at least. #diversealz https://t.co/0ls4saMEyg |
| nursesKidONE @nursesKidONE RT @AlzToronto: Book respite for a day. Relax at home. Read. Go out for dinner. Watch movies. Do art. Go to museum. Spa day. Weekend trip. #diversealz https://t.co/1L3GSZ8MzV |
| Diverse Alzheimers @DiverseAlz Ask for help https://t.co/VFzpMTeB3D |
| Alzheimer Society TO @AlzToronto @helenfindlay @DiverseAlz Yes! Sounds very basic but we don't always think about these things. #diversealz *lp |
| Diverse Alzheimers @DiverseAlz This is good and see word "insisted" https://t.co/jKLVP3NiwJ |
| Bikerwise @bikerwise @nchadborn @DawnMGibson #diversealz Mood and behaviour vary more than memory and impact on how the person can be handled. Also tend to reflect carer mood . |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: @helenfindlay @DiverseAlz Yes! Sounds very basic but we don't always think about these things. #diversealz *lp |
| Chuck @OrangeChuck @DiverseAlz I thought I could handle things with minimal help but things went downhill all around us this year & it hit me hard. #diversealz |
| Alzheimer Society TO @AlzToronto FYI you can get counselling FREE of charge with the Alzheimer Society. Find one in your area: https://t.co/BWROgVojTb #diversealz https://t.co/qZb4l4N9s5 |
| Diverse Alzheimers @DiverseAlz Look https://t.co/05ckeD4oVw |
| Diverse Alzheimers @DiverseAlz RT @DeeDavies12: |
| Dawn M Gibson @DawnMGibson A3: Having clear sense of what is doable and what's too much is essential. #DiverseAlz https://t.co/7YFsLlie0C |
 | Outrun The Stigma @outrunthestigma RT @AlzToronto: FYI you can get counselling FREE of charge with the Alzheimer Society. Find one in your area: https://t.co/BWROgVojTb #diversealz https://t.co/qZb4l4N9s5 |
| Bikerwise @bikerwise @AlzToronto #diversealz Not easy in a rural area. Have one group I join but not many available. |
| Diverse Alzheimers @DiverseAlz We also have to think of people who might live alone with person with dementia. Information then of such importance #diversealz |
| Chuck @OrangeChuck @DiverseAlz @DawnMGibson Yeah i made the mistake of cutting out things I enjoyed or extensively limiting them for mom's stuff. #diversealz |
| Dawn M Gibson @DawnMGibson A3: Be ready to live without others approving of or understanding what you're doing or going through. #DiverseAlz https://t.co/7YFsLlie0C |
| 2centscorner @2centscorner @DiverseAlz Utilize every resource within ones reach (friends, family, neighbors, parishioners, community orgs.) #diversealz |
| nursesKidONE @nursesKidONE RT @2centscorner: @DiverseAlz Make sure to stay up-to-date with regular medical/dental/eye appointments. #diversealz |
| Dawn M Gibson @DawnMGibson The pitter-patter... #DiverseAlz https://t.co/77PbVuYRtp |
| Diverse Alzheimers @DiverseAlz In living alone with person with dementia one solution could be team effort...walking together, gardening. Baking #Diversealz |
| Alzheimer Society TO @AlzToronto Next topic: what can we do to overcome some of these accessibility barriers? #diversealz *lp https://t.co/ZijH2MNRUl |
| Bikerwise @bikerwise @nchadborn #diversealz The need as carer to always be happy and positive is very tiring. No time off. |
| Diverse Alzheimers @DiverseAlz Utilise every resource https://t.co/f3Z82xhLuM |
| Diverse Alzheimers @DiverseAlz RT @2centscorner: @DiverseAlz Utilize every resource within ones reach (friends, family, neighbors, parishioners, community orgs.) #diversealz |
| Chuck @OrangeChuck @DawnMGibson Yeah or even trying to sneak a nap but afraid they may need to go bathroom or hungry or something. #diversealz |
| Dawn M Gibson @DawnMGibson Y-e-s! Having a list of things you need helps get help when it's offered. #DiverseAlz https://t.co/mt9J4fa8CD |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: Self-care can be the difference between being able to continue with daily life and being too burnt out. #diversealz *lp https://t.co/HBPkDzNPJY |
| Dawn M Gibson @DawnMGibson Yes! It's hard to get that across, even in medical setting. #DiverseAlz https://t.co/KsaZhIMq3U |
| Chuck @OrangeChuck Let me clarify. My family didn't disown us or anything...just thought I could handle it mostly alone...I was wrong. #diversealz |
| Diverse Alzheimers @DiverseAlz Question 4: isn't self care just as important for care workers and folk with people with dementia in residential home? #diversealz |
| Dawn M Gibson @DawnMGibson So true. There is no break. #DiverseAlz https://t.co/3DEwwQ7lF0 |
| Bikerwise @bikerwise @DiverseAlz #diversealz #parkrun has been brilliant for allowing us each to run at our own speed. Very inclusive & allows me space & exercise. |
| Chuck @OrangeChuck We lost dad almost 3 years ago while caring for mom & I took it on myself to honor his memory by making mom's care priority #1. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz RT @DawnMGibson: 100%. The uncertainty around mood & behavior is hard to look away from. #DiverseAlz https://t.co/QXwfILLRgH |
| 2centscorner @2centscorner RT @DiverseAlz: Question 4: Question 4: isn't self care just as important for care workers and folk with people with dementia in residential home? #diversealz |
| Diverse Alzheimers @DiverseAlz @DawnMGibson @nchadborn The unpredictability of it does not always help. #diversealz |
| Chuck @OrangeChuck I think anyone caring for others needs a mental break because the worry/concern is real & can dominate your every thought. #diversealz https://t.co/0EqmvECON6 |
| Bikerwise @bikerwise @Minghowriter @DawnMGibson #diversealz Too true. Emotional commitment. Shared past. |
| Dawn M Gibson @DawnMGibson I feel like most people don't get what brain diseases are all about. #DiverseAlz https://t.co/r07TaNAI4q |
| Dawn M Gibson @DawnMGibson RT @Minghowriter: @nchadborn @DawnMGibson #Confabulation, #delusion, #hallucination: |
| Diverse Alzheimers @DiverseAlz Re: tips, lots of good suggestions coming up. Pick and mix. Also showing, as usual some suggestions can't suit everyone #diversealz |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Dawn M Gibson @DawnMGibson RT @nchadborn: |
| nursesKidONE @nursesKidONE Could 1) direct care staff to patient ratio and 2) quality of staff training in caring for PWD be significant to this? #diversealz https://t.co/IbLokir48M |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: I think anyone caring for others needs a mental break because the worry/concern is real & can dominate your every thought. #diversealz https://t.co/0EqmvECON6 |
| Chuck @OrangeChuck I had the same mentality I approached my job with. Give it 110% while doing it but with caregiving, there is no off time. #diversealz https://t.co/ddq8eiYKG7 |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Guilt has appeared in chat and carer guilt can be big for many. Is there a way around it @AlzToronto #diversealz #your experience |
| nursesKidONE @nursesKidONE RT @DawnMGibson: The #MemoryCare staff help us process our situation. They care about us too. #DiverseAlz https://t.co/BfRPWPtddj |
| nursesKidONE @nursesKidONE RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz Carers can often do much and not realise toll having on their own health re: person with dementia. #diversealz |
| nursesKidONE @nursesKidONE RT @OrangeChuck: It's harder than you think sometimes. You can easily become obsessed with their care and lose yourself. #diversealz https://t.co/2Ovi4tBIv5 |
| Bikerwise @bikerwise RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Bottom line when more than one person tells you, you don't look right or something like that (language notwithstanding) act. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Sole carers https://t.co/02SbPyYOEd |
| Chuck @OrangeChuck @helenfindlay @DiverseAlz Yes and if those PWD are like mom, seeing the same faces can bring comfort & familiarity which makes it easier for all. #diversealz |
| Diverse Alzheimers @DiverseAlz Good news https://t.co/31QGPwbBxD |
| Diverse Alzheimers @DiverseAlz RT @DawnMGibson: The #MemoryCare staff help us process our situation. They care about us too. #DiverseAlz https://t.co/BfRPWPtddj |
| nursesKidONE @nursesKidONE Unfortunately, that was when I could have some time for myself; so lots of lost sleep! #diversealz https://t.co/oRkM9DKZZC |
| nursesKidONE @nursesKidONE RT @OrangeChuck: Sleep is important but also difficult at times because your brain overthinks or PWD wakes as you're just about to sleep. #diversealz https://t.co/OrBjG0Ru1f |
| Dawn M Gibson @DawnMGibson The quiet/supportive environment of #MemoryCare unit made all the difference with mood. #DiverseAlz https://t.co/r07TaNAI4q |
| nursesKidONE @nursesKidONE RT @bikerwise: @Minghowriter @DiverseAlz #diversealz I find social time hard because friends forget I cannot just easily rearrange, care arrangements need sorting. |
| Diverse Alzheimers @DiverseAlz Why should it end? Would be great to see research on how relatives cope when PWD moved into care homes #diversealz @nchadborn. |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Unfortunately, that was when I could have some time for myself; so lots of lost sleep! #diversealz https://t.co/oRkM9DKZZC |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: @helenfindlay @DiverseAlz Yes and if those PWD are like mom, seeing the same faces can bring comfort & familiarity which makes it easier for all. #diversealz |
| Bikerwise @bikerwise RT @TommyTommytee18: |
| Chuck @OrangeChuck @DiverseAlz @Minghowriter As a sole caregiver myself who is still coping with anxiety issues, get help/relief somehow. #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Visits from friends would be great. Gives people free time depending on situations #diversealz |
 | Naomi Martin 🇪🇺 🇺🇦 🥤🇬🇪 @GNaomiMartin RT @TommyTommytee18: |
| Naomi Martin 🇪🇺 🇺🇦 🥤🇬🇪 @GNaomiMartin RT @TommyTommytee18: |
| Chuck @OrangeChuck @Minghowriter @DiverseAlz Yes and that's what happened here. I got pneumonia & 2 days later mom got a UTI & i realized how vulnerable we were now. #diversealz |
| Dawn M Gibson @DawnMGibson RT @OrangeChuck: ASK FOR HELP!!! I almost waited until it was too late and my anxiety was starting to ruin me. #diversealz https://t.co/lJpwHMuPSL |
| Bikerwise @bikerwise @TommyTommytee18 #diversealz But systems are set up to care for very sedentary PLWD. So carer finds themselves having to work against system. |
| Diverse Alzheimers @DiverseAlz Hearing from @Shedfieldlodge that support for care workers is vital. We often forget about them #diversealz |
| Dawn M Gibson @DawnMGibson RT @DiverseAlz: Question 4: Question 4: isn't self care just as important for care workers and folk with people with dementia in residential home? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Dawn M Gibson @DawnMGibson RT @nursesKidONE: Could 1) direct care staff to patient ratio and 2) quality of staff training in caring for PWD be significant to this? #diversealz https://t.co/IbLokir48M |
| Diverse Alzheimers @DiverseAlz Vulnerability https://t.co/LbjAQmRwEe |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: @Minghowriter @DiverseAlz Yes and that's what happened here. I got pneumonia & 2 days later mom got a UTI & i realized how vulnerable we were now. #diversealz |
| Dawn M Gibson @DawnMGibson RT @DiverseAlz: Bottom line when more than one person tells you, you don't look right or something like that (language notwithstanding) act. #diversealz |
| Diverse Alzheimers @DiverseAlz Get help somehow https://t.co/Yvbm0ULO1B |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| 2centscorner @2centscorner @DiverseAlz Find ways to free up some “me time”: order groceries online; cook lg amounts (freeze portions); get up hr early tea/meditate #diversealz |
 | Denis @ElderLawOkla RT @OrangeChuck: I think anyone caring for others needs a mental break because the worry/concern is real & can dominate your every thought. #diversealz https://t.co/0EqmvECON6 |
| Chuck @OrangeChuck @helenfindlay @DiverseAlz Yes & reason I could not handle more than mom is unsure I could ever handle that much grief honestly. #diversealz |
| Diverse Alzheimers @DiverseAlz Where someone has relative or friend in residential care home could involve long distance can be issue if commitments #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: @helenfindlay @DiverseAlz Yes & reason I could not handle more than mom is unsure I could ever handle that much grief honestly. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE Had we known #PrimaryProgressiveAphasia affects language, may have been additional options/opportunities to for assistance. #Diversealz https://t.co/7BE5o09SZ4 |
| Diverse Alzheimers @DiverseAlz Some people find having relative in care gone stressful. Some may feel firefighting #DiverseAlz |
| Dawn M Gibson @DawnMGibson RT @DiverseAlz: Where someone has relative or friend in residential care home could involve long distance can be issue if commitments #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Anxiety can be issue for some people @nchadborn and. It always because residential home isn't good #diversealz |
| Chuck @OrangeChuck My other fear that began consuming me: what if something serious happens to me or i pass & it's just mom & I. Darn brain! #diversealz https://t.co/NEiq1375rm |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: My other fear that began consuming me: My other fear that began consuming me: what if something serious happens to me or i pass & it's just mom & I. Darn brain! #diversealz https://t.co/NEiq1375rm |
| Diverse Alzheimers @DiverseAlz Relationship building in care homes mentioned by @helenfindlay #diversealz |
| Bikerwise @bikerwise @OrangeChuck #diversealz I have emergency plan for this eventuality. Is hard work to set up but pacified me about risk. |
 | JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @DawnMGibson: A3: A3: Be ready to live without others approving of or understanding what you're doing or going through. #DiverseAlz https://t.co/7YFsLlie0C |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz People who juggle work with caring and family's responsibilities need to be aware of health. What options available? Flexitime? #diversealz |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE Yes! But it still helps to have time for oneself. #DiverseAlz https://t.co/oQ5CVs7nvh |
| Diverse Alzheimers @DiverseAlz @nchadborn Not sure use phrase quality of care as could be misconstrued but certainly up date on wellbeing. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| nursesKidONE @nursesKidONE RT @DawnMGibson: Y-e-s! Having a list of things you need helps get help when it's offered. #DiverseAlz https://t.co/mt9J4fa8CD |
| Diverse Alzheimers @DiverseAlz Look https://t.co/1dlFwU00ju |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Diverse Alzheimers @DiverseAlz This one... https://t.co/AUxlg0DpyN |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz @nchadborn @PEACHStudy Communication is essential and regular at that and honesty #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz Worry within care gone settings can be when relative is getting worse but one is told they are fine and no further info offered #diversealz |
| Diverse Alzheimers @DiverseAlz There is Alzheimer's Society sponsored caregiving Hope study by @SahdiaParveen might look at carer's health needs. Is crucial #diversealz |
| nursesKidONE @nursesKidONE And then there are the dementias which initially affect language #PPA or visual spatial perception #PCA #Diversealz https://t.co/rDAAWHpo2C |
| Diverse Alzheimers @DiverseAlz Just do it https://t.co/QXc1qkRdBr |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz Look https://t.co/lzkr9ixsYN |
| nursesKidONE @nursesKidONE Trained direct care workers in proper setting could provide information about a PWD to help improve effectiveness of support. #Diversealz https://t.co/m1cl2xk4rz |
 | Sandra Lewis @Lewis99Lewis RT @DiverseAlz: There is Alzheimer's Society sponsored caregiving Hope study by @SahdiaParveen might look at carer's health needs. Is crucial #diversealz |
| Diverse Alzheimers @DiverseAlz Also important to realise and note that should a serious incident happen at residential home, can impact relatives health #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| nursesKidONE @nursesKidONE There may be circumstances in which the professional care worker has a better relationship w/ PLWD than family member(s) #Diversealz https://t.co/JVacHz6k5S |
 | Michael Leary @Michael_Leary RT @AlzToronto: Book respite for a day. Relax at home. Read. Go out for dinner. Watch movies. Do art. Go to museum. Spa day. Weekend trip. #diversealz https://t.co/1L3GSZ8MzV |
| Diverse Alzheimers @DiverseAlz @Shedfieldlodge @helenfindlay @AlzToronto Hopefully, you have been able to follow timeline re: carers with families in care homes and #diversealz |
| nursesKidONE @nursesKidONE RT @Shedfieldlodge: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
#DiverseAlz content from Twitter.