#DiverseAlz Transcript
Healthcare social media transcript of the #DiverseAlz hashtag.
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See #DiverseAlz Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diverse Alzheimers @DiverseAlz Good day wherever you are and welcome to #diversealz here to chat about dementia, festivals and celebrations. How does/can one prepare? |
| Diverse Alzheimers @DiverseAlz We start with an icebreaker #diversealz |
| Diverse Alzheimers @DiverseAlz What’s the first thing that springs to mind when you hear the word festival or celebration? Just tweet! #diversealz maybe with a reason why. #icebreaker |
| Diverse Alzheimers @DiverseAlz The chat this evening is the result of sitting in traffic waiting to get out of a car park and it isn’t even Christmas yet. So all this (waiting) has implications especially where unexpected. We stick to festivals and celebrations to open up the conversation. #diversealz |
 | Pat Broster @PatBroster RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz @BME_Dementia hello. Hope you have time for conversation as we chat festivals and celebrations. Opening those festivities up from Ramadan to weddings (should someone mention it!). Now thinking of people with dementia who (contemplate) participate in Hajj #diversealz |
| Diverse Alzheimers @DiverseAlz Our #icebreaker what do you think of on hearing words festival(s) or celebrations? #diversealz |
| Diverse Alzheimers @DiverseAlz Starting off icebreaker with one word: joy. #diversealz |
 | Caroline @journeyofcareM @DiverseAlz My mother takes such pleasure each year from the Christmas tree (a real balsam which has soft needles and a sweet scent) so this year I'll be putting one up earlier than the norm so she have more joy from it. #DiverseAlz https://t.co/6eikC2l5i0 |
| Diverse Alzheimers @DiverseAlz RT @journeyofcareM: @DiverseAlz My mother takes such pleasure each year from the Christmas tree (a real balsam which has soft needles and a sweet scent) so this year I'll be putting one up earlier than the norm so she have more joy from it. #DiverseAlz https://t.co/6eikC2l5i0 |
| Diverse Alzheimers @DiverseAlz Christmas mentioned twice in icebreaker so clearly going to take centre stage but we’ll look at other considerations later too #diversealz Let’s start...joyously! |
| Diverse Alzheimers @DiverseAlz We keep mentioning joy so we’re going to work that into our first question and it covers Christmas. We’ve got one example via @journeyofcareM too #diversealz |
 | Farai Pfende @FPfende @DiverseAlz @helenfindlay @BME_Dementia Hi all! #diversealz |
| Diverse Alzheimers @DiverseAlz Question 1: How can/does one plan for Christmas with “dementia in the house”? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz We are going to reference joy at Christmas while realising as @TommyTommytee18 also points out that it can be a stressful time for many. He mentions carers. We’ll return to that #diversealz |
| Diverse Alzheimers @DiverseAlz Pleasure and joy is mentioned by @journeyofcareM who will be putting the Christmas tree up earlier than usual because he mother loves it #Diversealz |
 | 🦋NasRaf🦋 @BubblyNas RT @DiverseAlz: @nursesKidONE @nchadborn @TommyTommytee18 @journeyofcareM @BubblyNas @helenfindlay @MyTwoElaines @Minghowriter #Diversealz Thurs: Dementia and festivities/celebrations. How does/can one prepare? |
| Caroline @journeyofcareM @DiverseAlz I can only speak from experience, but for my mother, she relishes the extra activity going on. People visiting, the gaiety, the seasonal music and food. It's a real treat. Christmas cheer is cheer for all ! #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Lots of smiling going on via timeline via tweets. Well, many should bring smile to face. This will become a question! #diversealz |
| Diverse Alzheimers @DiverseAlz RT @journeyofcareM: @DiverseAlz I can only speak from experience, but for my mother, she relishes the extra activity going on. People visiting, the gaiety, the seasonal music and food. It's a real treat. Christmas cheer is cheer for all ! #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
 | JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
 | nursesKidONE @nursesKidONE RT @DiverseAlz: Good day wherever you are and welcome to #diversealz here to chat about dementia, festivals and celebrations. How does/can one prepare? |
| Diverse Alzheimers @DiverseAlz Always great to ask questions and wait for answers as can’t always second guess and shows how people are different. Both @helenfindlay @journeyofcareM mentioning how mothers enjoy(ed) company during Christmas #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: What’s the first thing that springs to mind when you hear the word festival or celebration? Just tweet! #diversealz maybe with a reason why. #icebreaker |
| Diverse Alzheimers @DiverseAlz As sensing smiles...here’s question two before we get down to@some nutty gritty questions #Diversealz |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @journeyofcareM: @DiverseAlz My mother takes such pleasure each year from the Christmas tree (a real balsam which has soft needles and a sweet scent) so this year I'll be putting one up earlier than the norm so she have more joy from it. #DiverseAlz https://t.co/6eikC2l5i0 |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @journeyofcareM: @DiverseAlz I can only speak from experience, but for my mother, she relishes the extra activity going on. People visiting, the gaiety, the seasonal music and food. It's a real treat. Christmas cheer is cheer for all ! #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Question 2: How can one promote moments of potential joy/happiness during Christmas time and we can consider other celebrations, here too? #Diversealz |
| Diverse Alzheimers @DiverseAlz The point of extra activity becomes important where people can cope with that. Depending on what is happening, can also bring 5 senses into play #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: The point of extra activity becomes important where people can cope with that. Depending on what is happening, can also bring 5 senses into play #diversealz |
| Diverse Alzheimers @DiverseAlz We know that for some people living with dementia, church services are particularly meaningful at this time. Singing carols/spirituals... #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: We know that for some people living with dementia, church services are particularly meaningful at this time. Singing carols/spirituals... #diversealz |
| Diverse Alzheimers @DiverseAlz Humour is always welcome depending on the festival/celebration of course. See @TommyTommytee18 and Carol Pun! #diversealz |
| Diverse Alzheimers @DiverseAlz @Ritchhh @helenfindlay Hello. Welcome to #diversealz. Hope enjoy the chat |
| Diverse Alzheimers @DiverseAlz Go with the flow tweets @Ritchhh #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: @DiverseAlz Q2: |
| Caroline @journeyofcareM @DiverseAlz Wondering to myself (but sharing as a question to all) why is it that once the festive season is over, life goes back to normal humdrum. Why not think of a way to keep some sense of it throughout the year, some sort of magical joy....#DiverseAlz |
| Diverse Alzheimers @DiverseAlz Interestingly timeline showing re: question 2 (promoting “joy”/happiness (term #diversealz prefers - thoughts) simple things are best. We tend to forget that these days (?) |
| Diverse Alzheimers @DiverseAlz @Ritchhh @helenfindlay Hello. Sending condolences. This is #diversealz conversation. Apologies but cannot find a reference to what you are referring to unless this is something known to HF or #alzchat |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz Question 3 How important is it to manage expectations with people with dementia in mind? See @Minghowriter #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz Going to tweet out Question 4 so don’t forget and it is so relevant. #diversealz |
| Diverse Alzheimers @DiverseAlz Question 4 Are festivals/celebrations a time to create/recreate memories/traditions? Think children especially #Diversealz |
| 🦋NasRaf🦋 @BubblyNas RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz @nchadborn see question 4. Storytelling or relaying histories can be valuable. Still remain as part of traditions and this is something that is, traditionally, part of human nature though the form may be disappearing for some. #gatekeepers #diversealz |
| Caroline @journeyofcareM @Minghowriter @TommyTommytee18 @PatBroster @hitchmough_paul @louise_langham @thredcic That would be very difficult. Some company might have made a difference for both of you. Here in cold winter Canada we get power outages & when no electricity (no heat, no water) caring becomes a whole lot harder. Even with a wood stove, hours tick by very slowly. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz @Minghowriter @nursesKidONE @nchadborn @TommyTommytee18 @journeyofcareM @BubblyNas @helenfindlay @MyTwoElaines Oh. So sorry to read this. She is too fragile now, right...so couldn’t even retry. Hope you manage to continue. Thank you so much for this share. Sending many good wishes to you. Will be thinking of you on Christmas Eve. Significant day here too. #diversealz |
| Diverse Alzheimers @DiverseAlz @Ritchhh @helenfindlay Double welcome. Will be looking out for you now. Regulars know what that means and you don’t have to join every week for that! #diversealz |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz See tips flying on timeline so here is question 5. #Diversealz thanks @TommyTommytee18 for starting a list |
| Diverse Alzheimers @DiverseAlz Question 5: what tips can one give during Christmas or other holiday seasons? #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Question 2: Question 2: How can one promote moments of potential joy/happiness during Christmas time and we can consider other celebrations, here too? #Diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: @DiverseAlz Q2: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Humour is always welcome depending on the festival/celebration of course. See @TommyTommytee18 and Carol Pun! #diversealz |
| Diverse Alzheimers @DiverseAlz Question 6 What tips can be given for carers/supporters at this time? See divided into 2 camps...is it stressful or less stressful at this time #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
 | billshankly💙 @williamshankly RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @journeyofcareM: @DiverseAlz Wondering to myself (but sharing as a question to all) why is it that once the festive season is over, life goes back to normal humdrum. Why not think of a way to keep some sense of it throughout the year, some sort of magical joy....#DiverseAlz |
| Diverse Alzheimers @DiverseAlz Have given you 6 questions now to pick and mix. We have also ventured into tips with questions 5 and 6 #diversealz |
| nursesKidONE @nursesKidONE RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz RT @journeyofcareM: @DiverseAlz Wondering to myself (but sharing as a question to all) why is it that once the festive season is over, life goes back to normal humdrum. Why not think of a way to keep some sense of it throughout the year, some sort of magical joy....#DiverseAlz |
| nursesKidONE @nursesKidONE RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz “Magical joy”’mentioned by @journeyofcareM who reminds us that Christmas is but one day and we need to think about the rest. #diversealz. This is where work begins. There’s a chat there. |
| Caroline @journeyofcareM @DiverseAlz @Minghowriter One of the BIG lessons I have learned in my caring of my mother is that the expectations are mostly from ME, not her. I've often burdened myself with my OWN angst, not hers, but thinking that they are hers. Most pwd are happy if ppl around them are happy. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Diverse Alzheimers @DiverseAlz RT @journeyofcareM: @DiverseAlz @Minghowriter One of the BIG lessons I have learned in my caring of my mother is that the expectations are mostly from ME, not her. I've often burdened myself with my OWN angst, not hers, but thinking that they are hers. Most pwd are happy if ppl around them are happy. #DiverseAlz |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Discussion point ultimately, is the pressure actually felt by carers/supporters who want to do more than is necessary because it is Christmas #managingexpectations #Diversealz |
| Caroline @journeyofcareM @DiverseAlz Keep it simple so you can enjoy the holiday. As a carer, if you are relaxed and happy, most times, so will the person you are caring for. Really quite easy. But I admit, I have to remind myself of this frequently ! #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Our #discussion point comes from @journeyofcareM tweet #diversealz |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @journeyofcareM: @DiverseAlz Keep it simple so you can enjoy the holiday. As a carer, if you are relaxed and happy, most times, so will the person you are caring for. Really quite easy. But I admit, I have to remind myself of this frequently ! #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Remembering as also mentioned on #diversealz that Christmas has challenges with the possibility of guests or obligatory events/entertaining #Diversealz |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz We have spoken about memories/stories. @house_memories hosts MT December Meet me drop-in events where they will be exploring Christmas traditions and wintertime events. #Diversealz |
| Diverse Alzheimers @DiverseAlz Question 7: what should one consider in visiting care homes at this time? Easy to forget impact arrival of extra visitors can have in these settings. More thoughts @helenfindlay @Minghowriter #Diversealz |
| 🦋NasRaf🦋 @BubblyNas RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE And it is very important to give the person with a dementia (and the primary care partner) the gift of your time at other times, not only holidays. #diversealz |
| Diverse Alzheimers @DiverseAlz @nchadborn are you looking at impact/value of storytelling during festival times? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @Minghowriter: |
| Caroline @journeyofcareM @Minghowriter @DiverseAlz @nursesKidONE @nchadborn @TommyTommytee18 @BubblyNas @helenfindlay @MyTwoElaines My mum has no memory of being married. At a recent medical test when asked her name, she gave her birth names. That's who she's now & probably till death. It doesn't bother me she's lost those yrs in between. I know she lived them. Strange reckonings. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Soon must explore notion of what one does for oneself to cope with “dementia intrusion”. A kind of self care but not quite. Timeline showing oftentimes some actions or rituals are done to quote timeline “for me”/“for myself.” Always with PErson with dementia in mind #diversealz |
| Diverse Alzheimers @DiverseAlz RT @journeyofcareM: @Minghowriter @DiverseAlz @nursesKidONE @nchadborn @TommyTommytee18 @BubblyNas @helenfindlay @MyTwoElaines My mum has no memory of being married. At a recent medical test when asked her name, she gave her birth names. That's who she's now & probably till death. It doesn't bother me she's lost those yrs in between. I know she lived them. Strange reckonings. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Presents were mentioned by @TommyTommytee18 #diversealz |
| Diverse Alzheimers @DiverseAlz Question 8 what kind of presents could one give a person with dementia? Talking suitability here #diversealz |
| Diverse Alzheimers @DiverseAlz re: question 8 and gift giving...also need to ask if it is relevant. That said @TommyTommytee18 has suggested a very valuable gift...company #diversealz |
#DiverseAlz content from Twitter.