#DiverseAlz Transcript
Healthcare social media transcript of the #DiverseAlz hashtag.
– ().
See #DiverseAlz Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diverse Alzheimers @DiverseAlz Good day where ever you are and welcome to #diversealz |
| Diverse Alzheimers @DiverseAlz We’re here to talk about dementia and research. #diversealz. |
| Diverse Alzheimers @DiverseAlz Welcome @TommyTommytee18 @nursesKidONE please have your question ready #diversealz |
 | nursesKidONE @nursesKidONE RT @DiverseAlz: Quite a few discussions going on in #diversealz timeline from Christmas presents (should they be different for PWD to how far would one travel to a care home and self care when that rest/relaxation can be elusive. |
 | Alzheimer Society TO @AlzToronto @DiverseAlz Hello! We are finally free at this time after a few weeks of missing out! #diversealz |
| Diverse Alzheimers @DiverseAlz There’s much to cover tonight . So let’s crack on. Would also like you to flood timeline with questions later. #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: #diversealz dementia & research 8pmGMT/3pmET today. Lots of attention drawn to this recently esp with Bill Gates donation for Alzheimer’s cure... but how much do we know about who and what’s out there? |
| nursesKidONE @nursesKidONE RT @DiverseAlz: We’re here to talk about dementia and research. #diversealz. |
| Diverse Alzheimers @DiverseAlz Question 1 Have you ever considered participating in dementia research or encouraging people to do so, and, if so, why? #diversealz |
| Diverse Alzheimers @DiverseAlz The chat is a result of the attention that is being drawn to research through donations (think Bill Gates) advertising and fundraising via big organisations. There is, however, research and research #diversealz. |
| Alzheimer Society TO @AlzToronto We host AST Speaker Series events 8-10 times a year and host various researchers and doctors (sometimes authors & others, too) to expose our clients to what's actually going on from the research perspective. It's well-received! https://t.co/QScMy2O2Ob |
| Diverse Alzheimers @DiverseAlz RT @DiverseAlz: Question 1 Have you ever considered participating in dementia research or encouraging people to do so, and, if so, why? #diversealz |
| Alzheimer Society TO @AlzToronto We host AST Speaker Series events 8-10 times a year and host various researchers and doctors (sometimes authors & others, too) to expose our clients to what's actually going on from the research perspective. It's well-received! #diversealz https://t.co/QScMy2O2Ob |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: We host AST Speaker Series events 8-10 times a year and host various researchers and doctors (sometimes authors & others, too) to expose our clients to what's actually going on from the research perspective. It's well-received! #diversealz https://t.co/QScMy2O2Ob |
| Alzheimer Society TO @AlzToronto We like connecting with researchers doing work here in #Toronto so clients can participate or find out more if they choose to do so. Everything is realistic, based on real & current trials and within reach. We leave the option open for interested clients. #diversealz https://t.co/QScMy2O2Ob |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: We like connecting with researchers doing work here in #Toronto so clients can participate or find out more if they choose to do so. Everything is realistic, based on real & current trials and within reach. We leave the option open for interested clients. #diversealz https://t.co/QScMy2O2Ob |
| nursesKidONE @nursesKidONE RT @DiverseAlz: The chat is a result of the attention that is being drawn to research through donations (think Bill Gates) advertising and fundraising via big organisations. There is, however, research and research #diversealz. |
| Diverse Alzheimers @DiverseAlz Question 2 Much emphasis on research appears to be in cure for Alzheimer’s . What would you look for in a research project on dementia? #Diversealz #publicity #promotions |
| Diverse Alzheimers @DiverseAlz Look https://t.co/d2cujj3G4I |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: @DiverseAlz Different ways of directly getting involved in research studies: |
| Diverse Alzheimers @DiverseAlz As @beatdementia mentioned by @nchadborn interesting via website how promotes itself. #diversealz |
| Diverse Alzheimers @DiverseAlz So @beatdementia encourages people to sign up for research projects and says is rather like a ”matchmaking service”. Folk informed when research is appropriate. Dementia not a requisite. #Diversealz |
| Diverse Alzheimers @DiverseAlz Look and hold that thought https://t.co/TygbR0rXUt |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz This https://t.co/DNZqQhKX7J |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: @DiverseAlz Q2: |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE A2. Would like to see study designed to improve awareness, diagnosis procedures & support services for dementias other than Alzheimer's among elderly African Americans. #diversealz https://t.co/WajsEhDiW3 |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @nchadborn: @DiverseAlz Different ways of directly getting involved in research studies: |
| Diverse Alzheimers @DiverseAlz Question 3: seeing references to cure. Is this where slant should be? And why Alzheimer’s and not other dementias. (That question again) #diversealz |
| Alzheimer Society TO @AlzToronto RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz There is lots of research going on out there though argue don’t seem to hear that much about it. So would be good to know how researchers recruit. #diversealz |
| Alzheimer Society TO @AlzToronto We appreciate studies searching for a cure for #Alzheimers, of course, but we need other studies as well: to understand the brain, protein build-up, symptoms, medication to manage symptoms, prevent onset... all kinds of research is still needed. *lp #diversealz https://t.co/2G02z2dJki |
| Diverse Alzheimers @DiverseAlz Research is paramount if we are to beat dementia from @derekfisher2907 #Diversealz |
 | Sarah Butchard @sarahbutchard @DiverseAlz @TommyTommytee18 @SURFLiverpool And can lead the research agenda, particularly related to Care, if involved from the start! #diversealz |
| Diverse Alzheimers @DiverseAlz Research leads to understanding... https://t.co/VbfnRgvSCp |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: We appreciate studies searching for a cure for #Alzheimers, of course, but we need other studies as well: We appreciate studies searching for a cure for #Alzheimers, of course, but we need other studies as well: to understand the brain, protein build-up, symptoms, medication to manage symptoms, prevent onset... all kinds of research is still needed. *lp #diversealz https://t.co/2G02z2dJki |
| Alzheimer Society TO @AlzToronto We promote local research studies on our social media and blog. We also work together with @Toronto_Memory to recruit. They do all sorts of clinical trials for new medications, as well as memory testing related to genetic #dementia. #diversealz https://t.co/k6EaRcfkJf |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: We promote local research studies on our social media and blog. We also work together with @Toronto_Memory to recruit. They do all sorts of clinical trials for new medications, as well as memory testing related to genetic #dementia. #diversealz https://t.co/k6EaRcfkJf |
| nursesKidONE @nursesKidONE I read a proposal which appeared to suggest the need for new clinical trials to test the failed drugs at higher doses and that existing safety & performance standards in clinical trials should be "relaxed" in order to do so. #diversealz https://t.co/8im9cHcuPy |
| Diverse Alzheimers @DiverseAlz RT @sarahbutchard: @DiverseAlz @TommyTommytee18 @SURFLiverpool And can lead the research agenda, particularly related to Care, if involved from the start! #diversealz |
| Diverse Alzheimers @DiverseAlz Question 4 is now in response to tweet from @sarahbutchard Can people with dementia and carers lead research agendas. Now got to add people from minority ethnic groups #diversealz #equity #respect |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @Clive_Ballard: |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Alzheimer Society TO @AlzToronto @nursesKidONE Interesting! We recently learned from @Toronto_Memory that scientists have been "re-purposing" drugs from other uses and studies and are looking to trial them for #dementia studies. *lp #diversealz |
| Diverse Alzheimers @DiverseAlz @nchadborn @catherine_max Thanks. Wanted to ask about research on stigma across board. We have the @AlzDisInt report from a few years back. Need more! #diversealz |
| nursesKidONE @nursesKidONE What about research that may benefit people with some dementias other than Alzheimer's? I read of a small study published earlier this year regarding an intervention for people with Primary Progressive Aphasia. #notjustdrugs #diversealz https://t.co/ZGuKnrnbrr |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Question 3: Question 3: seeing references to cure. Is this where slant should be? And why Alzheimer’s and not other dementias. (That question again) #diversealz |
| nursesKidONE @nursesKidONE RT @AlzToronto: We appreciate studies searching for a cure for #Alzheimers, of course, but we need other studies as well: We appreciate studies searching for a cure for #Alzheimers, of course, but we need other studies as well: to understand the brain, protein build-up, symptoms, medication to manage symptoms, prevent onset... all kinds of research is still needed. *lp #diversealz https://t.co/2G02z2dJki |
| Diverse Alzheimers @DiverseAlz Some people may ask is Alzheimer’s up there because of the press, organisations bearing name, history with Alois...#diversealz |
| Diverse Alzheimers @DiverseAlz Research in better support would be welcome https://t.co/XJ034DggbJ |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz How does this work? https://t.co/1wLGV4iPm5 |
| Diverse Alzheimers @DiverseAlz RT @tshakey: |
| Diverse Alzheimers @DiverseAlz With @tshakey who devised UCL free online course was it faces of dementia? Wonder if they can help elraise awareness of value dementia research?#diversealz |
| Diverse Alzheimers @DiverseAlz As aside, would like to research research on self care for carers of people with dementia esp. single when there is idea that it is practically impossible. #diversealz #lifestyle |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
 | JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz @TommyTommytee18 Should be but many will say it isn’t. We’ve already had question via @dementiauk about why missing from mainstream. This is also research #diversealz |
| Alzheimer Society TO @AlzToronto @DiverseAlz Yep, this research is also important! We need to let our governments know that caregivers need more support and our healthcare systems need to be ready for an influx of people living with #dementia. #diversealz *lp |
| Diverse Alzheimers @DiverseAlz RT @AlzToronto: @DiverseAlz Yep, this research is also important! We need to let our governments know that caregivers need more support and our healthcare systems need to be ready for an influx of people living with #dementia. #diversealz *lp |
| Alzheimer Society TO @AlzToronto @CBCAlerts @DiverseAlz have you seen this news? #diversealz *lp |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: What about research that may benefit people with some dementias other than Alzheimer's? I read of a small study published earlier this year regarding an intervention for people with Primary Progressive Aphasia. #notjustdrugs #diversealz https://t.co/ZGuKnrnbrr |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @helenfindlay: |
| Alzheimer Society TO @AlzToronto RT @helenfindlay: |
| nursesKidONE @nursesKidONE There should be research 1)to reassess the role in diagnosis & 2)to improve knowledge of the PLWD & the skill sets of paid nursing aides & unpaid family members who provide the direct support & care for most PLWDs. Instead of trying to create cheaper labor pool. #diversealz |
| Diverse Alzheimers @DiverseAlz Question 5 via @nursesKidONE: What about research that may benefit people with some dementias other than Alzheimer's? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
 | Disabled In Action @DIA_SYR RT @tshakey: |
 | Sue Newsome @suenewse99 RT @helenfindlay: |
| nursesKidONE @nursesKidONE My concern is the appeartance that the pharmaceutical industry has more influence in these channels than PLWD, care partners & even researchers, doctors, nurses & other health professionals. #diversealz https://t.co/zp86Ni1nJJ |
| Diverse Alzheimers @DiverseAlz Question 6: any thoughts on why some groups are underrepresented in research? #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Some people may ask is Alzheimer’s up there because of the press, organisations bearing name, history with Alois...#diversealz |
 | Naomi Martin 🇪🇺 🇺🇦 🥤🇬🇪 @GNaomiMartin RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Now reading timeline so can comment. Interested in @nchadborn on Public health issues around dementia and research. Know he has@lots good work going on. Please share! #diversealz |
| Diverse Alzheimers @DiverseAlz Question 7 scenario you are working on research to address stigma. What would you ask your volunteers and how would you address comments such as...you’re just telling tales. #diversealz |
| Diverse Alzheimers @DiverseAlz Please keep the conversation going! #diversealz |
| nursesKidONE @nursesKidONE I think that number should be challenged. The brain is so complex & knowledge of dementias among primary care & other doctors is limited. Care for the elderly is often not pursued as diligently as it is with younger patients for many different reasons. #diversealz https://t.co/JaJsUeNE4E |
| nursesKidONE @nursesKidONE RT @tshakey: |
| nursesKidONE @nursesKidONE RT @AlzToronto: @DiverseAlz Yep, this research is also important! We need to let our governments know that caregivers need more support and our healthcare systems need to be ready for an influx of people living with #dementia. #diversealz *lp |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @Shedfieldlodge: |
 | Nadine Mirza @thealmostpsych RT @nchadborn: |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| Alzheimer Society TO @AlzToronto RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz If you have any research you want to highlight or research questions like @organiclemon re: dementia please tweet to timeline. Hopefully, twitter verse can help. #diversealz |
 | Manitoba Home Care @Comforts_Inc Very true. RT @helenfindlay: Better care and support and change in attitudes generally also needed. Society can disable people rather than the other way round #diversealz |
| nursesKidONE @nursesKidONE @nchadborn Hypertension is epidemic among African Americans, we are told. So perhaps this & other factors would create a different profile of dementias among African Americans. And then there are issues related to accurate diagnosis, including validation of screening tests. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz @TommyTommytee18 Perhaps also how asked when asked as well #diversealz. Alsk think LGBTQ and traveller/gypsie groups |
| Naomi Martin 🇪🇺 🇺🇦 🥤🇬🇪 @GNaomiMartin RT @TommyTommytee18: |
#DiverseAlz content from Twitter.