#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | NCI Cancer Stats @NCICancerStats The 5-year relative survival rate for #EndometrialCancer is 81.3%. Get more stats here: https://t.co/DzB8GUwYtV #GynCSM https://t.co/4hbx7ay8Gq |
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 #gyncsm |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We start out with 10 min of intro's - Please take a moment to introduce yourself. :) #gyncsm |
 | Hello_U👋🏼 @MommysCancer Happening right now! https://t.co/AR0AFzP6OK |
 | Tobey @BRCAinfo It’s time for the #gyncsm chat. Happy & healthy New year all 👋 |
| Hello_U👋🏼 @MommysCancer RT @gyncsm: New to tweetchats? Read our tips: New to tweetchats? Read our tips: https://t.co/e9seDKOhrP #gyncsm |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm |
 | Lauren Hand @LCooperHand Happy New Year everyone! Thanks so much for being here. I'm Lauren, a gynecologic oncology fellow at Magee Women's Hospital. #gyncsm |
| Hello_U👋🏼 @MommysCancer RT @gyncsm: You can read over tonight’s #gyncsm topic questions before we get started https://t.co/yIzrT5P61E |
 | CancerDotNet @CancerDotNet RT @gyncsm: The first #GYNCSM (GYNecologic Cancer Social Media) chat of 2018 will get started in a few minutes! |
| Hello_U👋🏼 @MommysCancer RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Rick Boulay,MD @journeycancer Hi everyone. Rick Boulay Gyn Onc from Allentown PA. #gyncsm |
| Dee Sparacio @womenofteal @BRCAinfo Hi Happy New Year to you too. #gyncsm |
| Rick Boulay,MD @journeycancer RT @gyncsm: We start out with 10 min of intro's - Please take a moment to introduce yourself. :) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm |
| Dee Sparacio @womenofteal @LCooperHand Hi Lauren , We are thrilled to have you here tonight. #gyncsm |
 | Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham #gyncsm Hello all - I'm a medical oncologist specializing in gynecologic cancers at @UFHealthCancer. |
| GYN Cancer | #GYNCSM @gyncsm Pls continue intro's & welcomes - we'll start in w/ the "ground rules" :) #gyncsm |
 | Erica Bednar @EMBOSU Happy New Year #gyncsm twitter-friends! I'm Erica, Genetic Counselor at @MDAndersonNews focusing on hereditary gynecologic cancers #endcancer https://t.co/4rwOq2DRc8 |
| Rick Boulay,MD @journeycancer RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm |
 | Robin Martinez @RobinSmrtPtient Robin Martinez from Smart Patients, where we continue the #gyncsm discussions 24/7 in longer posts. :-) |
| Dee Sparacio @womenofteal @journeycancer Hi Rick Happy New Year. Glad to see our weather is warming up. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm |
| Dee Sparacio @womenofteal Feeling a bit under the weather but Dee is here! Dx #ovca Stage3B 2005, OC research advocate, blogger & co-moderator #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
 | Enlightening Results 💡 @GraceCordovano Hi #gyncsm! Grace, private cancer patient advocate, joining from NJ. https://t.co/TfB8zVOIak |
| Rick Boulay,MD @journeycancer @LCooperHand Hi Lauren. I remember my days at Magee fondly. Welcome #gyncsm |
 | Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN Hi all, I'm Grace from Pittsburgh. I'm a rehabilitation nurse interested in helping women stay functional during and after Gyn cancer treatment and through survivorship. #gyncsm |
 | Sarah Belcher @SarahMBelcher Good evening all. I'm Sarah, oncology nurse & PhD student in Pittsburgh #GYNCSM |
| Dee Sparacio @womenofteal @DrMarkham @UFHealthCancer Hi Merry Happy New Year! Hope you you had some time to bake some goodies over the holidays. #gyncsm |
| Enlightening Results 💡 @GraceCordovano @btrfly12 @gyncsm Hi Christina! Happy new year! #gyncsm |
 | Rie Lopez, MPH (she/her) @RieOfLetters Happy Wednesday and 2018 everyone! Rie here. Health educator, patient advocate, and all-around delightful human (so I have heard). Very glad to be joining you all for another important chat. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Pls continue intro's & welcomes - we'll start in w/ the "ground rules" :) #gyncsm |
 | Michele Rhee @michelerhee RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm |
| Enlightening Results 💡 @GraceCordovano RT @NCICancerStats: The 5-year relative survival rate for #EndometrialCancer is 81.3%. Get more stats here: The 5-year relative survival rate for #EndometrialCancer is 81.3%. Get more stats here: https://t.co/DzB8GUwYtV #GynCSM https://t.co/4hbx7ay8Gq |
| Robin Martinez @RobinSmrtPtient Dee, me too. Need a hot toddy right about now but don't want to leave the chat! #gyncsm |
| Michele Rhee @michelerhee @gyncsm @womenofteal #gyncsm |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham @womenofteal I definitely did. Too many goodies! #gyncsm |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Happy New Year everyone. I'm Shereese, HC strategist from Maryland #gyncsm https://t.co/hA1OUAIvYB |
| Enlightening Results 💡 @GraceCordovano @womenofteal Hi Dee! Happy, happy New Year! #gyncsm |
| Dee Sparacio @womenofteal @EMBOSU @MDAndersonNews Hi Erica , Welcome and Happy New Year. #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters @womenofteal Hi Dee! Hope you got some rest. Always great to see you! #gyncsm |
 | Dr. Heidi Donovan @HeidiSDonovan #gyncsm Hi everyone! I'm Heidi- nurse, scientist, advocate for women with gyn cancers and their family caregivers |
| Dee Sparacio @womenofteal @RobinSmrtPtient Hi Robin - Happy New Year #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience. |
| Tobey @BRCAinfo @womenofteal Oh no Feel better Dee #gyncsm https://t.co/NrYUHFP350 |
| Enlightening Results 💡 @GraceCordovano @RieOfLetters Nice to see you here Rie! #gyncsm |
| Dee Sparacio @womenofteal Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @GraceCordovano @btrfly12 @gyncsm I guess I'm stalking you this week. 3 chats, lol #gyncsm https://t.co/fThfTRZd7d |
| Dee Sparacio @womenofteal Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal info #GYNCSM |
| Dee Sparacio @womenofteal #gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We welcome all those tweeting & “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
| Dee Sparacio @womenofteal @RieOfLetters Hi Rie , So glad you can join us. #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters @BRCAinfo Hi Tobey! Happy and healthy 2018 to you!!! #gyncsm |
| Enlightening Results 💡 @GraceCordovano @ShereesePubHlth @btrfly12 @gyncsm Great to see you! Hope you had a great day. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight on #gyncsm we will discuss: Supporting #Caregiver Wants and Needs |
| Rick Boulay,MD @journeycancer @HeidiSDonovan Welcome Heidi. #gyncsm |
| Dee Sparacio @womenofteal @GraceCordovano @btrfly12 @gyncsm Hi Grace - Happy you are joining us tonight. Happy New Year #gyncsm |
| Dee Sparacio @womenofteal @garmischgirl Hi Linda Welcome Happy New year too. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: Tonight on #gyncsm we will discuss: Tonight on #gyncsm we will discuss: Supporting #Caregiver Wants and Needs |
| Robin Martinez @RobinSmrtPtient I'd like to let everyone know that https://t.co/WC18aFhyUS has a very active caregiver community. All family members and friends involved in caregiving are welcome to take part. #gyncsm |
| Dee Sparacio @womenofteal @SarahMBelcher Hi Sarah So happy you are joining us. #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters @GraceCordovano Hi Grace! Great to see you again and so soon. Wouldn't miss it for the world. #gyncsm https://t.co/oX6NuL7DM3 |
| Rick Boulay,MD @journeycancer Wow. What a great turnout! #gyncsm |
| Dee Sparacio @womenofteal @GraceCampbellRN Hello Grace. Thanks for joining us. #gyncsm |
 | Lisa Davis Budzinski @lisadbudzinski RT @gyncsm: We start out with 10 min of intro's - Please take a moment to introduce yourself. :) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We're excited to have Laura Hand @LCooperHand with us and are excited about her gyn cancer caregiver project. #gyncsm |
| Enlightening Results 💡 @GraceCordovano RT @RobinSmrtPtient: I'd like to let everyone know that https://t.co/WC18aFhyUS has a very active caregiver community. All family members and friends involved in caregiving are welcome to take part. #gyncsm |
| Dee Sparacio @womenofteal Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat |
| GYN Cancer | #GYNCSM @gyncsm As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm |
| Dee Sparacio @womenofteal @ShereesePubHlth Hi There. Thanks for joining us. #gyncsm |
 | Jillosopher, BSN, RN @jillosopher Hello #gyncsm joining a bit late |
| GYN Cancer | #GYNCSM @gyncsm See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/yIzrT5P61E |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @RobinSmrtPtient: I'd like to let everyone know that https://t.co/WC18aFhyUS has a very active caregiver community. All family members and friends involved in caregiving are welcome to take part. #gyncsm |
| Dee Sparacio @womenofteal @RieOfLetters I did. Thanks. #gyncsm |
| Christina Lizaso @btrfly12 @jillosopher So glad you are here :) #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: See this link for a listing of all the #gyncsm topic questions that will be coming up: See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/yIzrT5P61E |
| GYN Cancer | #GYNCSM @gyncsm Here comes Topic 1 (T1:)... #gyncsm |
| Dee Sparacio @womenofteal @HeidiSDonovan Hi Heidi, So glad you are joining us. And thanks for the RT's about the chat. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T1: T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear? #gyncsm |
| Christina Lizaso @btrfly12 @garmischgirl So glad to see you :) #gyncsm |
| Dee Sparacio @womenofteal RT @RobinSmrtPtient: I'd like to let everyone know that https://t.co/WC18aFhyUS has a very active caregiver community. All family members and friends involved in caregiving are welcome to take part. #gyncsm |
 | Double Whammy @double_whammied RT @gyncsm: As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm |
| Jillosopher, BSN, RN @jillosopher @btrfly12 Thanks. Good to be here #gyncsm |
| Christina Lizaso @btrfly12 @BRCAinfo Yay to chatting in real time :) #gyncsm |
 | PINK AND BLUE MOVIE @pinkandbluedoc RT @LguzzardiM: #PeritonealCancer Risk after risk-reducing surgery in #BRCA mutation carriers @DanaFarber @harvardmed #gyncsm #Genetics #WomensHealth #hereditarycancernews https://t.co/K4EzE8luPQ |
| Dee Sparacio @womenofteal @jillosopher No problem Glad you are here. #gyncsm |
 | Heather 🇺🇸 @ZHeatherChamp Hello! Would love to participate but have an appointment tonight. Hope to catch up soon! I live with #PTEN mutation, prophylactic hysterectomy 12/13. #gyncsm #rdsm |
| Dee Sparacio @womenofteal RT @gyncsm: See this link for a listing of all the #gyncsm topic questions that will be coming up: See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/yIzrT5P61E |
| Dee Sparacio @womenofteal RT @gyncsm: T1: T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear? #gyncsm |
| Michele Rhee @michelerhee RT @gyncsm: The next #GYNCSM tweetchat is tonight, Wed Jan 10th at 9pmET | 8pmCT | 6pmPT. The topic will be Supporting #Caregiver Wants and Needs. #caregiving #caregivers #ptexp https://t.co/sKoKVmKdt5 |
| Heather 🇺🇸 @ZHeatherChamp RT @gyncsm: Join us on Wed, Jan 10th, 9pmET for our #GYNCSM (GYNecologic Cancer) chat on Supporting #Caregiver Wants and Needs https://t.co/nDbbZmWQI7 https://t.co/hUWNAZ3VFg |
| Rie Lopez, MPH (she/her) @RieOfLetters @jillosopher Fashionably late, of course. :-) #gyncsm https://t.co/hl3t8AAsXi |
 | HPM Chat @hpmchat RT @gyncsm: T1: T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear? #gyncsm |
| Dr. Heidi Donovan @HeidiSDonovan @womenofteal #gyncsm thanks Dee. All of us from @PittNursing at guess to be a part of this! |
| Dee Sparacio @womenofteal @ZHeatherChamp We'll share a link to the transcript . Thanks for stopping by. #gyncsm |
| HPM Chat @hpmchat RT @gyncsm: You can read over tonight’s #gyncsm topic questions before we get started https://t.co/yIzrT5P61E |
| Heather 🇺🇸 @ZHeatherChamp A1: TO ENSURE the caregiver is making themselves a top priority too. My mom needed to connect w/others but never did. I know she needed it! #gyncsm #pten #rdsm |
| Double Whammy @double_whammied RT @RobinSmrtPtient: I'd like to let everyone know that https://t.co/WC18aFhyUS has a very active caregiver community. All family members and friends involved in caregiving are welcome to take part. #gyncsm |
| Christina Lizaso @btrfly12 T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear? #gyncsm |
| Rick Boulay,MD @journeycancer Caregivers need to make time to care for themselves mentally and physically and they need to accept help from others. https://t.co/MqJYfQIvxA |
| Tobey @BRCAinfo T1 caregivers are filled with anxiety & exhaustion #gyncsm |
| Enlightening Results 💡 @GraceCordovano T1: Include #carepartners in discussions & treatment planning. Conference call them in to appts they can not attend. They are the boots-on-the-ground when there isn’t a dr or nurse in sight #gyncsm https://t.co/mjZhUTWqKO |
| Michele Rhee @michelerhee RT @btrfly12: T1: T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear? #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba I'd tell providers that caregivers suffer the same level of burnout that physicians experience & that it should a consideration when designing a care plan. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @gyncsm T1: 1. Importance of self care. 2. See number 1. #gyncsm |
 | Candace Henley @colon_survivor RT @gyncsm: T1: T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear? #gyncsm |
| Heather 🇺🇸 @ZHeatherChamp @garmischgirl I have family in Bend! #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters A1: Most healthcare providers are already aware of caregiver burnout and need for mental health supports. However, HCP should have a ready list of resources and tips for caregivers. If the primary caregivers suffer, the patient will too. #gyncsm |
| Christina Lizaso @btrfly12 T1: I think everything is heightened and so maybe some basics in crisis communication could be helpful. #gyncsm |
| Rick Boulay,MD @journeycancer Caregivers need to make time to care for themselves mentally and physically as well as accepting help from others. #gyncsm https://t.co/MqJYfQIvxA |
| Dr. Heidi Donovan @HeidiSDonovan @GraceCordovano That offer to conference CGs in when they can't attend in person is so important and so underused. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Topic 2 coming up... #gyncsm |
 | Sarah Cassidy @CassidyFish2 @btrfly12 Self-care is definitely one. A professional’s reminder may carry more weight than friends/family. Then actively direct to avail resources. #gyncsm |
| Christina Lizaso @btrfly12 RT @jillosopher: @gyncsm T1: @gyncsm T1: 1. Importance of self care. 2. See number 1. #gyncsm |
 | Cancer Hope Network @CancerHopeNet RT @gyncsm: T1: T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear? #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters @BRCAinfo This is so very true, and often, caregivers feel like they can't or shouldn't share this information. #gyncsm |
| Dee Sparacio @womenofteal @CassidyFish2 @btrfly12 Hi Sarah Welcome. #gyncsm |
| Rick Boulay,MD @journeycancer RT @HeidiSDonovan: @GraceCordovano That offer to conference CGs in when they can't attend in person is so important and so underused. #gyncsm |
| Enlightening Results 💡 @GraceCordovano T1: #Carepartners need access to information for care coordination. What forms/permissions need to be granted to allow carepartners to consistently speak on patients behalf & engage w/ care team. #gyncsm |
| Sarah Cassidy @CassidyFish2 @womenofteal @btrfly12 Hi Dee! Glad to be here. #gyncsm |
| Rick Boulay,MD @journeycancer RT @GraceCordovano: T1: T1: Include #carepartners in discussions & treatment planning. Conference call them in to appts they can not attend. They are the boots-on-the-ground when there isn’t a dr or nurse in sight #gyncsm https://t.co/mjZhUTWqKO |
| Christina Lizaso @btrfly12 RT @RobinSmrtPtient: I'd like to let everyone know that https://t.co/WC18aFhyUS has a very active caregiver community. All family members and friends involved in caregiving are welcome to take part. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2: T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role? #gyncsm |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T1: T1: #Carepartners need access to information for care coordination. What forms/permissions need to be granted to allow carepartners to consistently speak on patients behalf & engage w/ care team. #gyncsm |
| Enlightening Results 💡 @GraceCordovano @journeycancer Helpful if caregivers have support suggestions ready: local support group, SoMe groups, other patients that have volunteered to connect. #gyncsm |
| Christina Lizaso @btrfly12 @GraceCordovano yes, before crisis points arise, that they have the knowledge and legal access they need set up and ready vs. scrambling #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T2: T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role? #gyncsm |
| Tobey @BRCAinfo @RieOfLetters I’m caregiving now to a loved one & it is EXHAUSTING! It’s true ❤️ love ~ #gyncsm |
| Cancer Hope Network @CancerHopeNet @RieOfLetters @BRCAinfo So true. We’ve found connecting w/ another #caregiver (#carepartner!! Love this!) can be a significant step toward alleviating some of the burden. #gyncsm |
| Lauren Hand @LCooperHand Thanks @GraceCordovano - What are SoMe groups? #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm [ Note - With latest twitter updates, you may need to chat it twitter (vs. a tweet chat tool) to see all the responses ] #gyncsm |
| Dee Sparacio @womenofteal T2 I would say it is OK to take a break every now and then- go to lunch, a movie , a run. Or just sleep. Had to tell my husband's friend to call him and invite him to lunch. He was so refreshed after that. #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters I really love this term, #carepartners and the advice is spot-on! #gyncsm https://t.co/DMreasrt1q |
 | Inspire @InspireIsHealth RT @journeycancer: Caregivers need to make time to care for themselves mentally and physically as well as accepting help from others. #gyncsm https://t.co/MqJYfQIvxA |
 | Amanda Crowell Itliong @MIShouldTalk Amanda here! Dx Ovarian Cancer 8/8/08, 3rd recurrence, in a trial... blah, blah, blah. 😉 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Acronym busting - SoME = Social Media :) #gyncsm |
| Rick Boulay,MD @journeycancer Caeegiving is a marathon not a road race. Prepare for the long haul. Your best care may not always be appreciated. Trust your gut. #gyncsm https://t.co/FhR3tHo9SY |
| Jillosopher, BSN, RN @jillosopher @gyncsm T2: all the family’s problems are amplified in illness/caregiver setting. Experienced that caring for parents. #gyncsm |
| Robin Martinez @RobinSmrtPtient T2: Be sure you have a HIPAA clearance in place so you can get your person's medical info and give input to the doctor when the patient cannot or does not. #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk RT @gyncsm: T2: T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role? #gyncsm |
| Enlightening Results 💡 @GraceCordovano T2: Majority of #patients w/cancer significantly benefit from palliative care earlier in treatment. Helps patient & carepartner ensure patient is treated as a whole. Carepartners, request palliative care referrals ASAP. #gyncsm https://t.co/0QHwHA2kdY |
| Cancer Hope Network @CancerHopeNet RT @GraceCordovano: T1: T1: Include #carepartners in discussions & treatment planning. Conference call them in to appts they can not attend. They are the boots-on-the-ground when there isn’t a dr or nurse in sight #gyncsm https://t.co/mjZhUTWqKO |
| Christina Lizaso @btrfly12 RT @CassidyFish2: @btrfly12 Self-care is definitely one. A professional’s reminder may carry more weight than friends/family. Then actively direct to avail resources. #gyncsm |
| Tobey @BRCAinfo @gyncsm It’s ok to ask a friend for help so you can get some rest #gyncsm |
| Inspire @InspireIsHealth RT @gyncsm: T2: T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role? #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters A2: It is essential to have your own support system. Seek out a support group and/or a professional therapist to address your own feelings and struggles. If people offer help, take it. You do not have to do it all and you shouldn’t. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: T2: T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role? #gyncsm |
| Dee Sparacio @womenofteal @MIShouldTalk Hi Amanda , Glad you are here. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Acronym busting - SoME = Social Media :) #gyncsm |
| Robin Martinez @RobinSmrtPtient T2: Also a good idea to give and get durable and medical power of attorney. (You never know when you might be the person who is in need of someone to say yes or no in your place!) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm [ Be sure to put #gyncsm (vs @gyncsm) if you want all participants to see your tweets :) ] |
| Erica Bednar @EMBOSU T2: I would want caregivers to know that they are doing a brave and selfless thing to help and care for a friend/loved one during a hugely challenging time...they deserve a big -thank you- for helping their loved one to get the best care #gyncsm https://t.co/wvODGxSBv9 |
| Dee Sparacio @womenofteal RT @RobinSmrtPtient: T2: T2: Be sure you have a HIPAA clearance in place so you can get your person's medical info and give input to the doctor when the patient cannot or does not. #gyncsm |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham Caregiving is one of the hardest roles ever. Important for caregivers to make time for themselves, allow help, ASK for help. #gyncsm |
| Dee Sparacio @womenofteal RT @journeycancer: Caeegiving is a marathon not a road race. Prepare for the long haul. Your best care may not always be appreciated. Trust your gut. #gyncsm https://t.co/FhR3tHo9SY |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @RobinSmrtPtient: T2: T2: Be sure you have a HIPAA clearance in place so you can get your person's medical info and give input to the doctor when the patient cannot or does not. #gyncsm |
 | KU Cancer Center @KUcancercenter Happening now! A wonderful Twitter chat about what cancer caregivers want and need. If you want to follow along or participate, just go to #gyncsm to see the conversation. https://t.co/U44TsjhJIw |
| Lauren Hand @LCooperHand @RobinSmrtPtient - Getting a HIPAA clearance is so important! #gyncsm |
| Enlightening Results 💡 @GraceCordovano @LCooperHand Social media, like twitter or Facebook 😀 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Topic 3 (T3:) coming up... https://t.co/yIzrT5P61E #gyncsm |
| Rick Boulay,MD @journeycancer @MIShouldTalk Welcome Amanda. Nice to see you #gyncsm |
| Dee Sparacio @womenofteal This is so true. #gyncsm https://t.co/AANnddQWA6 |
| Dee Sparacio @womenofteal RT @RieOfLetters: A2: A2: It is essential to have your own support system. Seek out a support group and/or a professional therapist to address your own feelings and struggles. If people offer help, take it. You do not have to do it all and you shouldn’t. #gyncsm |
| KU Cancer Center @KUcancercenter RT @gyncsm: T1: T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear? #gyncsm |
| Jillosopher, BSN, RN @jillosopher T2: I had to help my husband realize how angry he was that my cancer happened. That it was even ok to be pissed at me. Emotions just... are... and need to be processed. #gyncsm |
| Dr. Heidi Donovan @HeidiSDonovan @RieOfLetters #carepartners - such a better, mire empowering term! #gyncsm |
| Dee Sparacio @womenofteal RT @DrMarkham: Caregiving is one of the hardest roles ever. Important for caregivers to make time for themselves, allow help, ASK for help. #gyncsm |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN @RobinSmrtPtient So important! HIPAA and POA are necessary. Thanks for bringing this up! #gyncsm |
| Sarah Cassidy @CassidyFish2 T2 Important to ensure you’re on all contact forms. Seems silly, but is easily forgotten when bouncing between many providers. #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @BRCAinfo: @gyncsm It’s ok to ask a friend for help so you can get some rest #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 I would tell them to empower themselves and be forthright with providers. Don't assume all the info/resources you need will come from your provider. #gyncsm https://t.co/xQIyOQVEDe |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN @garmischgirl @gyncsm That must have been awful for you. #gyncsm |
| Christina Lizaso @btrfly12 T2: That is is okay to make mistakes. That you can't be perfect - no matter how much you wish you could. Be kind to yourself. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T3: What are some of the barriers to family caregivers getting access to and utilizing the support services they want and need? #gyncsm |
| Dee Sparacio @womenofteal @garmischgirl @gyncsm You are right. I was a part time caregiver with my sister for my Aunt. It is very tough. But we had each other to talk too. Not always the case. #gyncsm |
| KU Cancer Center @KUcancercenter RT @gyncsm: T2: T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T3: T3: What are some of the barriers to family caregivers getting access to and utilizing the support services they want and need? #gyncsm |
| Inspire @InspireIsHealth Hello to #gyncsm, John Novack here from Inspire, better late than never (I hope). |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: T2 I would tell them to empower themselves and be forthright with providers. Don't assume all the info/resources you need will come from your provider. #gyncsm https://t.co/xQIyOQVEDe |
| Jillosopher, BSN, RN @jillosopher @garmischgirl @gyncsm I feel you on that. I have the same issues with parents gone two decades now. So difficult. #gyncsm |
| Cancer Hope Network @CancerHopeNet Yes! Honor the efforts of #caregivers - and help in practical ways before they ask. #gyncsm https://t.co/zDuxswliGi |
| Rick Boulay,MD @journeycancer RT @EMBOSU: T2: T2: I would want caregivers to know that they are doing a brave and selfless thing to help and care for a friend/loved one during a hugely challenging time...they deserve a big -thank you- for helping their loved one to get the best care #gyncsm https://t.co/wvODGxSBv9 |
| Robin Martinez @RobinSmrtPtient T2: That any decision your patient and you make is the right decision for now, regardless of how it turns out. We can't see the future. Jump on the horse and ride it! #gyncsm |
| Rick Boulay,MD @journeycancer RT @DrMarkham: Caregiving is one of the hardest roles ever. Important for caregivers to make time for themselves, allow help, ASK for help. #gyncsm |
| Inspire @InspireIsHealth RT @gyncsm: T3: T3: What are some of the barriers to family caregivers getting access to and utilizing the support services they want and need? #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters @garmischgirl @gyncsm This is absolutely valid. I don't think there is any way to prepare and even the preparation you do...well, it just isn't the same as lived experience. I hope that you have support and are treating yourself gently as you recover. #gyncsm |
| Enlightening Results 💡 @GraceCordovano @teaminspire Hi John! Glad you made it #GYNCSM |
| Amanda Crowell Itliong @MIShouldTalk I’m listening especially hard to y’all! Past10 yrs w/cancer I’ve either been married to a not at all care-giver or on my own and now lucky to have my parents as caregivers. Want to support them supporting me! #gyncsm |
| Christina Lizaso @btrfly12 T2: I would tell them that they and the patient are the main hub of coordination and they have to self advocate and be drivers. #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @CassidyFish2: T2 Important to ensure you’re on all contact forms. Seems silly, but is easily forgotten when bouncing between many providers. #gyncsm |
| Dee Sparacio @womenofteal Yes #carepartners experience a range of feelings such as those they care for. #gyncsm https://t.co/Ad9sPW3S13 |
| Christina Lizaso @btrfly12 @teaminspire Welcome - So nice to chat in real time :) #gyncsm |
 | Enrique Soto @EnriqueSoto8 RT @DrMarkham: Caregiving is one of the hardest roles ever. Important for caregivers to make time for themselves, allow help, ASK for help. #gyncsm |
| Dee Sparacio @womenofteal RT @CassidyFish2: T2 Important to ensure you’re on all contact forms. Seems silly, but is easily forgotten when bouncing between many providers. #gyncsm |
| Jillosopher, BSN, RN @jillosopher T3: shame and pride. #gyncsm https://t.co/OxDubkSHDh |
| Dee Sparacio @womenofteal RT @gyncsm: T3: T3: What are some of the barriers to family caregivers getting access to and utilizing the support services they want and need? #gyncsm |
| Rick Boulay,MD @journeycancer RT @jillosopher: T2: T2: I had to help my husband realize how angry he was that my cancer happened. That it was even ok to be pissed at me. Emotions just... are... and need to be processed. #gyncsm |
| Christina Lizaso @btrfly12 T3: I think when you are overwhelmed you go into crisis mode just keep doing what your are doing vs. take a step back #gyncsm |
| Tobey @BRCAinfo @gyncsm T3 I’m my biggest barrier. I feel no one will give my loved one the care that I will because I love them #gyncsm |
| Rick Boulay,MD @journeycancer RT @btrfly12: T2: T2: That is is okay to make mistakes. That you can't be perfect - no matter how much you wish you could. Be kind to yourself. #gyncsm |
| Dee Sparacio @womenofteal @teaminspire Hi John , Thanks for joining us! #gyncsm |
| KU Cancer Center @KUcancercenter RT @gyncsm: T3: T3: What are some of the barriers to family caregivers getting access to and utilizing the support services they want and need? #gyncsm |
| Christina Lizaso @btrfly12 RT @RobinSmrtPtient: T2: T2: That any decision your patient and you make is the right decision for now, regardless of how it turns out. We can't see the future. Jump on the horse and ride it! #gyncsm |
| Christina Lizaso @btrfly12 RT @BRCAinfo: @gyncsm T3 I’m my biggest barrier. I feel no one will give my loved one the care that I will because I love them #gyncsm |
| Jillosopher, BSN, RN @jillosopher @TLHagan I did. It was so weird but so good for him, encouraging him to feel that. Even irrational anger at me. #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters A3: Barriers to accessing and utilizing support services are often rooted in lack of awareness of what is available or that they even exist, financial concerns, and time. Additionally, many caregivers place personal/internal pressure on themselves to do it all. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Topic 4 - parts a) and b) coming up... https://t.co/yIzrT5P61E #gyncsm |
| Sarah Belcher @SarahMBelcher @MIShouldTalk Thanks for sharing. It's so important to recognize how much the well being of a caregiver impacts everyone around him/her #GYNCSM |
| Inspire @InspireIsHealth RT @RieOfLetters: A3: A3: Barriers to accessing and utilizing support services are often rooted in lack of awareness of what is available or that they even exist, financial concerns, and time. Additionally, many caregivers place personal/internal pressure on themselves to do it all. #gyncsm |
| Dee Sparacio @womenofteal RT @RieOfLetters: A3: A3: Barriers to accessing and utilizing support services are often rooted in lack of awareness of what is available or that they even exist, financial concerns, and time. Additionally, many caregivers place personal/internal pressure on themselves to do it all. #gyncsm |
| Rick Boulay,MD @journeycancer The biggest barriers are realization that caregivers need help themselves.Actually finding and tapping into resources is also tough. #gyncsm https://t.co/gCGESg2C0w |
| GYN Cancer | #GYNCSM @gyncsm T4a: What resources for caregiver support have you found in your area (formal and informal)? Have you utilized these resources? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T4a: T4a: What resources for caregiver support have you found in your area (formal and informal)? Have you utilized these resources? #gyncsm |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN RT @RieOfLetters: A3: A3: Barriers to accessing and utilizing support services are often rooted in lack of awareness of what is available or that they even exist, financial concerns, and time. Additionally, many caregivers place personal/internal pressure on themselves to do it all. #gyncsm |
| Christina Lizaso @btrfly12 RT @RieOfLetters: A3: A3: Barriers to accessing and utilizing support services are often rooted in lack of awareness of what is available or that they even exist, financial concerns, and time. Additionally, many caregivers place personal/internal pressure on themselves to do it all. #gyncsm |
| Dee Sparacio @womenofteal The #caregiver is new to all the medical jargon and testing too. They are learning along with us. Wish they had a guidebook. #gyncsm |
| Tobey @BRCAinfo RT @RieOfLetters: A3: A3: Barriers to accessing and utilizing support services are often rooted in lack of awareness of what is available or that they even exist, financial concerns, and time. Additionally, many caregivers place personal/internal pressure on themselves to do it all. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4a: T4a: What resources for caregiver support have you found in your area (formal and informal)? Have you utilized these resources? #gyncsm |
| Enlightening Results 💡 @GraceCordovano T3: 📌time 📌lack of respite or childcare 📌lack of knowledge about resources 📌belief you can do it all yourself 📌cultural: not wanting non-family member helping #GYNCSM https://t.co/KFrTspcUmf |
| Rick Boulay,MD @journeycancer RT @CancerHopeNet: Yes! Honor the efforts of #caregivers - and help in practical ways before they ask. #gyncsm https://t.co/zDuxswliGi |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @GraceCordovano: T3: 📌time 📌lack of respite or childcare 📌lack of knowledge about resources 📌belief you can do it all yourself 📌cultural: not wanting non-family member helping #GYNCSM https://t.co/KFrTspcUmf |
| Christina Lizaso @btrfly12 RT @womenofteal: The #caregiver is new to all the medical jargon and testing too. They are learning along with us. Wish they had a guidebook. #gyncsm |
| Erica Bednar @EMBOSU T3: From watching my own family members, those in care giver role felt that they had to care 24/7, and that only they could be the one to provide care...which became a barrier to them asking for, or receiving support #gyncsm https://t.co/XldDhrjDqK |
| Dee Sparacio @womenofteal So True #gyncsm https://t.co/1yUlCrfoAO |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T3: 📌time 📌lack of respite or childcare 📌lack of knowledge about resources 📌belief you can do it all yourself 📌cultural: not wanting non-family member helping #GYNCSM https://t.co/KFrTspcUmf |
| KU Cancer Center @KUcancercenter RT @gyncsm: T4a: T4a: What resources for caregiver support have you found in your area (formal and informal)? Have you utilized these resources? #gyncsm |
| Rick Boulay,MD @journeycancer RT @jillosopher: T3: T3: shame and pride. #gyncsm https://t.co/OxDubkSHDh |
| Jillosopher, BSN, RN @jillosopher @gyncsm T4a: my hospital offers a caregiver support group, but my husband never went. Too busy, inconvenient time of day. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T3 Speaking from a tech side, interoperability deficits keep patients and caregivers from connecting the dots of their care & support. Access is a peculiar thing when communication is an obstacle #gyncsm https://t.co/oNpaQYmww0 |
 | Kathleen Maxian @KathleenMaxian #gyncsm There are a lack of resources and respite services for caregivers of GYN cancers. |
| Cancer Hope Network @CancerHopeNet T3: Recognizing that they will need support too - their focus is so often on their loved one. #gyncsm |
| Christina Lizaso @btrfly12 T4a: I always hear good feedback about local Cancer Support Community groups (formerly Gilda's Clubs). #gyncsm |
| Inspire @InspireIsHealth RT @GraceCordovano: T3: 📌time 📌lack of respite or childcare 📌lack of knowledge about resources 📌belief you can do it all yourself 📌cultural: not wanting non-family member helping #GYNCSM https://t.co/KFrTspcUmf |
| Sarah Belcher @SarahMBelcher T3: Barriers to caregiver support services - Caregiver needs often not addressed in context of care recipient visit - more likely to be addressed in setting where their care is the focus, which may not happen #gyncsm |
| Dee Sparacio @womenofteal RT @KathleenMaxian: #gyncsm There are a lack of resources and respite services for caregivers of GYN cancers. |
| Lauren Hand @LCooperHand @garmischgirl - thanks for sharing. Caregiving can be so overwhelming! #gyncsm |
| Dee Sparacio @womenofteal T4a caregivers in US and Canada can reach out to @cancerhopenet to be matched to support volunteers who are caregivers. #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters A4a: In my local area, there are approximately 6 caregiver support groups. Most of them are hosted by councils on aging, licensed social workers, and/or the local hospital. Informal support from family, friends, and my church family has been priceless. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: T4a caregivers in US and Canada can reach out to @cancerhopenet to be matched to support volunteers who are caregivers. #gyncsm |
| Robin Martinez @RobinSmrtPtient @womenofteal https://t.co/WC18aFhyUS is good for helping caregivers, patients, and concerned friends get up to speed with all the terminology involved in disease and care. No question is too small or too large. #gyncsm |
| Dee Sparacio @womenofteal Another good resource is @CancerSupportHQ For their caregiver programs. #gyncsm |
 | Danielle Pardue @Actorielle RT @KathleenMaxian: #gyncsm There are a lack of resources and respite services for caregivers of GYN cancers. |
| GYN Cancer | #GYNCSM @gyncsm Thanks to all for sharing of your experience and insights on today's #gyncsm. T4b coming up... #gyncsm |
| Dee Sparacio @womenofteal RT @RobinSmrtPtient: @womenofteal https://t.co/WC18aFhyUS is good for helping caregivers, patients, and concerned friends get up to speed with all the terminology involved in disease and care. No question is too small or too large. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4b: How did you find out about local caregiving resources - physician, nurse, cancer center, nonprofit, etc.? #gyncsm |
| Jillosopher, BSN, RN @jillosopher T4a: my cancer dx and tx propelled us to finally find a spiritual home in joining a church. Not exactly caregiver support, but we can’t do this living and needing alone. 🙏🏻#gyncsm |
| CancerDotNet @CancerDotNet @gyncsm https://t.co/z7njHqlfPw has patient and caregiver-friendly resources on caring for a loved one: https://t.co/vBl8z0Djoe #GynCSM |
| GYN Cancer | #GYNCSM @gyncsm RT @CancerDotNet: @gyncsm https://t.co/z7njHqlfPw has patient and caregiver-friendly resources on caring for a loved one: @gyncsm https://t.co/z7njHqlfPw has patient and caregiver-friendly resources on caring for a loved one: https://t.co/vBl8z0Djoe #GynCSM |
| Dee Sparacio @womenofteal @RobinSmrtPtient Just joined @Smartpatients #caregiver group and it is a thoughtful and informative group. #gyncsm |
| Sarah Belcher @SarahMBelcher @GraceCordovano Great points! Really interested in how unplanned/ongoing caregiver role impacts other preexisting caregiving roles (e.g. parenting, aging parents, etc). #gyncsm |
| Danielle Pardue @Actorielle RT @gyncsm: T4a: T4a: What resources for caregiver support have you found in your area (formal and informal)? Have you utilized these resources? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4b: T4b: How did you find out about local caregiving resources - physician, nurse, cancer center, nonprofit, etc.? #gyncsm |
| Danielle Pardue @Actorielle RT @CancerDotNet: @gyncsm https://t.co/z7njHqlfPw has patient and caregiver-friendly resources on caring for a loved one: @gyncsm https://t.co/z7njHqlfPw has patient and caregiver-friendly resources on caring for a loved one: https://t.co/vBl8z0Djoe #GynCSM |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN Interesting point, @ShereesePubHlth --I never thought about tech limitations impacting care coordination and support. #gyncsm https://t.co/yvIXb8jXFJ |
| Rie Lopez, MPH (she/her) @RieOfLetters @jillosopher @gyncsm Yes! I notice that a lot are scheduled in mornings or early afternoon, which is something that assumes that caregivers/carepartners are not working or extremely flexible with their schedule. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T4b: T4b: How did you find out about local caregiving resources - physician, nurse, cancer center, nonprofit, etc.? #gyncsm |
| Rick Boulay,MD @journeycancer Church groups were very helpful. Friends organizing folks to take care of needs ( meals/ visits etc). Little offered in medical area #gyncsm https://t.co/ODsezI0UF2 |
| Jillosopher, BSN, RN @jillosopher RT @GraceCordovano: T3: 📌time 📌lack of respite or childcare 📌lack of knowledge about resources 📌belief you can do it all yourself 📌cultural: not wanting non-family member helping #GYNCSM https://t.co/KFrTspcUmf |
| Dee Sparacio @womenofteal But still a place for support and to feel part of a community. #gyncsm https://t.co/fkzAFvkWQ8 |
| Enlightening Results 💡 @GraceCordovano T4: Support needs to be tailored to person. Spiritual? Speak to local house of worship. Group setting? Local hospitals have schedules of various groups meeting weekly. Love SoMe? Join a tweetchat. One to one? 4th Angel, Stupid Cancer. #gyncsm https://t.co/hYknmcL8qF |
| Rick Boulay,MD @journeycancer RT @GraceCordovano: T3: 📌time 📌lack of respite or childcare 📌lack of knowledge about resources 📌belief you can do it all yourself 📌cultural: not wanting non-family member helping #GYNCSM https://t.co/KFrTspcUmf |
| Cancer Hope Network @CancerHopeNet RT @womenofteal: T4a caregivers in US and Canada can reach out to @cancerhopenet to be matched to support volunteers who are caregivers. #gyncsm |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham RT @CancerDotNet: @gyncsm https://t.co/z7njHqlfPw has patient and caregiver-friendly resources on caring for a loved one: @gyncsm https://t.co/z7njHqlfPw has patient and caregiver-friendly resources on caring for a loved one: https://t.co/vBl8z0Djoe #GynCSM |
| Christina Lizaso @btrfly12 @jillosopher I think support can come in all forms. Finding community is a great form of caregiver support. Volunteering somewhere can be that too. #gyncsm |
| Rick Boulay,MD @journeycancer RT @EMBOSU: T3: T3: From watching my own family members, those in care giver role felt that they had to care 24/7, and that only they could be the one to provide care...which became a barrier to them asking for, or receiving support #gyncsm https://t.co/XldDhrjDqK |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @GraceCampbellRN We still have patients & caregivers who are forced to pick up/deliver their own records, often at cost, b/c of the lack of interoperability & coordination of care #gyncsm |
| Dee Sparacio @womenofteal RT @GraceCordovano: T4: T4: Support needs to be tailored to person. Spiritual? Speak to local house of worship. Group setting? Local hospitals have schedules of various groups meeting weekly. Love SoMe? Join a tweetchat. One to one? 4th Angel, Stupid Cancer. #gyncsm https://t.co/hYknmcL8qF |
| Christina Lizaso @btrfly12 RT @GraceCampbellRN: Interesting point, @ShereesePubHlth --I never thought about tech limitations impacting care coordination and support. #gyncsm https://t.co/yvIXb8jXFJ |
| Enlightening Results 💡 @GraceCordovano @SarahMBelcher Called the “sandwich generation”. #GYNCSM |
| GYN Cancer | #GYNCSM @gyncsm Topic 5 (T5:) coming up... https://t.co/yIzrT5P61E #gyncsm |
| Dee Sparacio @womenofteal T4b I heard about Caregiver resources from my cancer center's social worker. #gyncsm |
| KU Cancer Center @KUcancercenter RT @gyncsm: T4b: T4b: How did you find out about local caregiving resources - physician, nurse, cancer center, nonprofit, etc.? #gyncsm |
| Cancer Hope Network @CancerHopeNet @womenofteal Thanks, Dee! Our trained caregiver volunteers can be a lifeline. Free, confidential .... and understanding of what you’re going through/demands on your time. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @GraceCampbellRN Not to mention, having unfettered access to those records. #gyncsm |
| Dee Sparacio @womenofteal So frustrating. #gyncsm https://t.co/GBSTssdBL5 |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN This. We need to do better at being truly patient- and #carepartner-centered. #gyncsm https://t.co/t5y8J5gT6a |
| GYN Cancer | #GYNCSM @gyncsm T5: If you could design a local family caregiver support program, what would that look like? What would you see as most important? #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters A4b: It was not easy! I found out about local resources through online searches and some support groups post their information in the local paper. Word of mouth/friends can be a good resource, as well as the hospitals in the area. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: T5: T5: If you could design a local family caregiver support program, what would that look like? What would you see as most important? #gyncsm |
| Inspire @InspireIsHealth RT @gyncsm: T4b: T4b: How did you find out about local caregiving resources - physician, nurse, cancer center, nonprofit, etc.? #gyncsm |
 | RandomRN @ReneeMarAnd RT @CancerDotNet: @gyncsm https://t.co/z7njHqlfPw has patient and caregiver-friendly resources on caring for a loved one: @gyncsm https://t.co/z7njHqlfPw has patient and caregiver-friendly resources on caring for a loved one: https://t.co/vBl8z0Djoe #GynCSM |
| Christina Lizaso @btrfly12 T5: I think some online modules or TELhealth style for quick consults could be helpful in taking time when you find that free 15min #gyncsm |
| Dr. Heidi Donovan @HeidiSDonovan #gyncsm thanks to everyone for generating this great list of resources. |
| Dee Sparacio @womenofteal Good point. Many times appts/ tests are scheduled and then the caregiver scrambles to find work / childcare coverage. #gycsm https://t.co/CRKIMbl3BX |
| Inspire @InspireIsHealth RT @gyncsm: T5: T5: If you could design a local family caregiver support program, what would that look like? What would you see as most important? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T5: T5: If you could design a local family caregiver support program, what would that look like? What would you see as most important? #gyncsm |
| Sarah Belcher @SarahMBelcher @ShereesePubHlth T3: Continuing to gain appreciation of how many still do not have access to electronic resources/digital divides #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The final topic (T6:) is coming up... https://t.co/yIzrT5P61E #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T5: T5: If you could design a local family caregiver support program, what would that look like? What would you see as most important? #gyncsm |
| KU Cancer Center @KUcancercenter .@TurningPointKC The Center for Hope and Healing offers support for cancer patients, their families and caregivers. If you haven’t heard of the free services provided by Turning Point, visit https://t.co/fEGj0u9GBL. #kansascity #gyncsm |
| Tobey @BRCAinfo @gyncsm T5 babysitting your loved one so you could get rest. Food shopping. Visiting massages lol #gyncsm |
| Rick Boulay,MD @journeycancer Include a 24/7 support line when you need someone available to talk through the difficult times. https://t.co/DThW2e05Jd |
| Dee Sparacio @womenofteal T5: I'd love to see #carepartners be able to reach out to another #caregiver at the same cancer center to help navigate the maze of paperwork , tests, insurance, scheduling. Every center has their own routine, requirements #gyncsm |
| Christina Lizaso @btrfly12 You know, even basics, like a list of the grocery stores in the area that do Click and Ship and help setting up - practical things #gyncsm |
| KU Cancer Center @KUcancercenter RT @gyncsm: T5: T5: If you could design a local family caregiver support program, what would that look like? What would you see as most important? #gyncsm |
| Dee Sparacio @womenofteal RT @KUcancercenter: .@TurningPointKC The Center for Hope and Healing offers support for cancer patients, their families and caregivers. If you haven’t heard of the free services provided by Turning Point, visit https://t.co/fEGj0u9GBL. #kansascity #gyncsm |
 | @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RT @MyelomaTeacher: @PatientPower Have U used #Neulasta Onpro & want 2 share ur story 2 help inform others of your experiences-If so email cindy@patientpower.info #lcsm #bcsm #mmsm #prostratecancer #gyncsm @patientpower |
| Kathleen Maxian @KathleenMaxian #gyncsm T5 caregiver support groups must be specific to GYN cancer. The learning curve on ovarian cancer is short. Trusted evidence based info is essential. |
| Dee Sparacio @womenofteal That is what I did for my Aunt. #gyncsm https://t.co/XM0iBt3xXj |
| Erica Bednar @EMBOSU I wish that my care giver family members could have had a good way to learn, practice, be reminded of, and implement *healthy* coping and stress-reduction techniques...it may have helped interfamily relationships, mental&physical health for all involved #gyncsm https://t.co/bPFxWwLoRY |
| Dr. Heidi Donovan @HeidiSDonovan @BRCAinfo @gyncsm Yes- free visiting massages for all #carepartners! #GynCSM |
| Christina Lizaso @btrfly12 RT @womenofteal: T5: T5: I'd love to see #carepartners be able to reach out to another #caregiver at the same cancer center to help navigate the maze of paperwork , tests, insurance, scheduling. Every center has their own routine, requirements #gyncsm |
| Inspire @InspireIsHealth RT @EMBOSU: I wish that my care giver family members could have had a good way to learn, practice, be reminded of, and implement *healthy* coping and stress-reduction techniques...it may have helped interfamily relationships, mental&physical health for all involved #gyncsm https://t.co/bPFxWwLoRY |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham RT @EMBOSU: I wish that my care giver family members could have had a good way to learn, practice, be reminded of, and implement *healthy* coping and stress-reduction techniques...it may have helped interfamily relationships, mental&physical health for all involved #gyncsm https://t.co/bPFxWwLoRY |
 | Brandi Preston @_brandiii #gyncsm oops forgot the hashtag https://t.co/OcRQFyVwwx |
| Jillosopher, BSN, RN @jillosopher T5: great idea! Like a caregiver mentoring program #gyncsm https://t.co/SbFFyCyJ2Y |
| Enlightening Results 💡 @GraceCordovano T5: Combo of telemedicine and in-Home palliative care. Real-time support. Assistance with coordination of care. Important: ability to compensate #carepartners for the hours upon hours of time they dedicate & relieve healthcare system of. #gyncsm https://t.co/EgsB6tzEHa |
| Christina Lizaso @btrfly12 Love to hear any thoughts on the needs of gyn cancer caregivers vs. other cancer caregivers.. #gyncsm |
| Rick Boulay,MD @journeycancer RT @EMBOSU: I wish that my care giver family members could have had a good way to learn, practice, be reminded of, and implement *healthy* coping and stress-reduction techniques...it may have helped interfamily relationships, mental&physical health for all involved #gyncsm https://t.co/bPFxWwLoRY |
| GYN Cancer | #GYNCSM @gyncsm T6: What national/digital resources for caregivers have you found helpful? How can national and local programs work together? #gyncsm |
| Cancer Hope Network @CancerHopeNet Brilliant, hands-on way to provide support! #gyncsm https://t.co/IIBxDkXJ8b |
| Christina Lizaso @btrfly12 RT @gyncsm: T6: T6: What national/digital resources for caregivers have you found helpful? How can national and local programs work together? #gyncsm |
| Tobey @BRCAinfo RT @EMBOSU: I wish that my care giver family members could have had a good way to learn, practice, be reminded of, and implement *healthy* coping and stress-reduction techniques...it may have helped interfamily relationships, mental&physical health for all involved #gyncsm https://t.co/bPFxWwLoRY |
| Rie Lopez, MPH (she/her) @RieOfLetters A5(a): I would like a caregiver support group that addresses the needs of younger families/caregivers. This includes better and more flexible scheduling. My particular area lacks non-English speaking support groups, which leaves a lot of people without resources. #gyncsm |
| Christina Lizaso @btrfly12 T6: Resource | @CancerCare Caregiver resource page https://t.co/OVvlHtJ8kD #gyncsm |
| KU Cancer Center @KUcancercenter RT @gyncsm: T6: T6: What national/digital resources for caregivers have you found helpful? How can national and local programs work together? #gyncsm |
| Rick Boulay,MD @journeycancer RT @GraceCordovano: T5: T5: Combo of telemedicine and in-Home palliative care. Real-time support. Assistance with coordination of care. Important: ability to compensate #carepartners for the hours upon hours of time they dedicate & relieve healthcare system of. #gyncsm https://t.co/EgsB6tzEHa |
| Dee Sparacio @womenofteal @jillosopher Exactly #gyncsm |
| Christina Lizaso @btrfly12 T6: Resource | Caring for the Caregiver Cancer Survival Toolbox® via @CancerAdvocacy https://t.co/7fUevsxPHQ #gyncsm |
| Inspire @InspireIsHealth RT @gyncsm: T6: T6: What national/digital resources for caregivers have you found helpful? How can national and local programs work together? #gyncsm |
| Enlightening Results 💡 @GraceCordovano @btrfly12 Carepartners that are spouses often need support with maintaining relationships and sexual health though are too embarrassed to ask for support. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T6: T6: What national/digital resources for caregivers have you found helpful? How can national and local programs work together? #gyncsm |
| Christina Lizaso @btrfly12 T6: Resource | Family Caregiver Alliance https://t.co/6FgV2vrN3N (800) 445-8106 #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters A5(b): It is important that people feel that the caregiver/carepartner group it is a safe space, a resource for education and finding support services. Self-care and respite would be a major component in my ideal group. #gyncsm |
| Robin Martinez @RobinSmrtPtient @btrfly12 I think this is especially important since so many #gyncsm caregivers are male. |
| Dee Sparacio @womenofteal T6 some more resources @SHAREing @CancerCare https://t.co/2jQNRVTV8U #gyncsm |
 | Maggie Rogers @magthenomad RT @GraceCordovano: T3: 📌time 📌lack of respite or childcare 📌lack of knowledge about resources 📌belief you can do it all yourself 📌cultural: not wanting non-family member helping #GYNCSM https://t.co/KFrTspcUmf |
| Christina Lizaso @btrfly12 RT @_brandiii: #gyncsm oops forgot the hashtag https://t.co/OcRQFyVwwx |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham T6: @Cancer.net has great information about caregiving. https://t.co/HwbRMrCO2V #gyncsm |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN Must be quite challenging to have many different quality services/foci available to meet the multifaceted needs out there. Would love to talk about this more sometime and hear ppl's thoughts on how to design this. #gyncsm https://t.co/2aXFCOMDjX |
| Christina Lizaso @btrfly12 RT @EMBOSU: I wish that my care giver family members could have had a good way to learn, practice, be reminded of, and implement *healthy* coping and stress-reduction techniques...it may have helped interfamily relationships, mental&physical health for all involved #gyncsm https://t.co/bPFxWwLoRY |
| Rick Boulay,MD @journeycancer RT @btrfly12: T6: T6: Resource | @CancerCare Caregiver resource page https://t.co/OVvlHtJ8kD #gyncsm |
| Jillosopher, BSN, RN @jillosopher There was/is an embarrassment factor for my husband. The conversations that happened, how I could feel him cringe. I had to support him through that. Wish someone in gyn onc wouod have noticed and helped #gyncsm https://t.co/KkFTGWrrtz |
| Rick Boulay,MD @journeycancer RT @btrfly12: T6: T6: Resource | Caring for the Caregiver Cancer Survival Toolbox® via @CancerAdvocacy https://t.co/7fUevsxPHQ #gyncsm |
| Christina Lizaso @btrfly12 RT @DrMarkham: T6: T6: @Cancer.net has great information about caregiving. https://t.co/HwbRMrCO2V #gyncsm |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham Oops -- @CancerDotNet #gyncsm https://t.co/to0gqoo0nH |
| Rick Boulay,MD @journeycancer RT @DrMarkham: T6: T6: @Cancer.net has great information about caregiving. https://t.co/HwbRMrCO2V #gyncsm |
| Maggie Rogers @magthenomad RT @KUcancercenter: Happening now! A wonderful Twitter chat about what cancer caregivers want and need. If you want to follow along or participate, just go to #gyncsm to see the conversation. https://t.co/U44TsjhJIw |
| Rie Lopez, MPH (she/her) @RieOfLetters A6: Family Caregiver Alliance offers a lot of online resources, including education, legal help, advocacy opportunities, and an online support group. It is important for national organizations to have outreach & engage advocates at the local level. #gyncsm |
| Dee Sparacio @womenofteal Forgot to add #gyncsm There was a support group/ org for women whose husbands had prostate cancer. Why not one for men / partners whose wives have gyn cancers? What about support in the LGBT community ? |
| Jillosopher, BSN, RN @jillosopher RT @womenofteal: Forgot to add #gyncsm There was a support group/ org for women whose husbands had prostate cancer. Why not one for men / partners whose wives have gyn cancers? What about support in the LGBT community ? |
| Erica Bednar @EMBOSU RT @womenofteal: Forgot to add #gyncsm There was a support group/ org for women whose husbands had prostate cancer. Why not one for men / partners whose wives have gyn cancers? What about support in the LGBT community ? |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN This must have been so hard for your both. Thank you for sharing. #gyncsm https://t.co/U3wGvcVkIo |
| Christina Lizaso @btrfly12 Is there something men can do together and throw in some support group type parts? Do males attend support groups in fewer#s? #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm It is time to start gathering your closing thoughts. We like to use TIL: standing for Today I Learned.... #gyncsm |
| Sarah Belcher @SarahMBelcher @btrfly12 T5: Seems as if there would be benefit for having general caregiver support best practices with offshoots for individual needs by cancer type #gyncsm |
| Lauren Hand @LCooperHand If you are a caregiver of or a patient with gyn cancer interested in sharing more ideas about caregiving in a formal survey... 1/2 #gyncsm |
| Maggie Rogers @magthenomad This mention of early #palliativecare in the #gyncsm twitter chat tonight on cancer caregivers is 👏🏻👏🏻👏🏻👏🏻 #hpm ASK FOR IT, DEMAND IT. Everyone with serious illness deserves a better quality of life! https://t.co/Ni8iEzkPuu |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @womenofteal: Forgot to add #gyncsm There was a support group/ org for women whose husbands had prostate cancer. Why not one for men / partners whose wives have gyn cancers? What about support in the LGBT community ? |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: It is time to start gathering your closing thoughts. We like to use TIL: It is time to start gathering your closing thoughts. We like to use TIL: standing for Today I Learned.... #gyncsm |
| Erica Bednar @EMBOSU RT @gyncsm: It is time to start gathering your closing thoughts. We like to use TIL: It is time to start gathering your closing thoughts. We like to use TIL: standing for Today I Learned.... #gyncsm |
| Dee Sparacio @womenofteal @jillosopher We had a support group were husbands were welcome. That lasted a year and Soon the husbands brought the wives and they hung out in the lobby and talked among themselves. #gyncsm |
| Lauren Hand @LCooperHand Your participation would involve 2-3 hours of your time through online surveys. Please contact (Lauren Hand) at handlc@upmc.edu 2/2 #gyncsm |
| Maggie Rogers @magthenomad RT @womenofteal: The #caregiver is new to all the medical jargon and testing too. They are learning along with us. Wish they had a guidebook. #gyncsm |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN I suspect that the LGBT community has been highly underserved re: support needs for their partners with gyn cancers. Another huge unmet need. #gyncsm https://t.co/HJont5NKY4 |
| Dee Sparacio @womenofteal This hour has flown by. I am sure I missed some amazing tweets. #gyncsm https://t.co/XEhFu37gM5 |
| Maggie Rogers @magthenomad RT @RieOfLetters: A3: A3: Barriers to accessing and utilizing support services are often rooted in lack of awareness of what is available or that they even exist, financial concerns, and time. Additionally, many caregivers place personal/internal pressure on themselves to do it all. #gyncsm |
| Dee Sparacio @womenofteal RT @LCooperHand: If you are a caregiver of or a patient with gyn cancer interested in sharing more ideas about caregiving in a formal survey... 1/2 #gyncsm |
| Jillosopher, BSN, RN @jillosopher @GraceCampbellRN I’m sort of an over sharer. He’s a very private Englishman. 😄 laughing now but it was hard I could tell. To his credit, it didn’t hinder his being there and giving care. ❤️ #gyncsm |
| Kathleen Maxian @KathleenMaxian #gyncsm T6 @WNYOCP mission is to provide supportive services to women with ovarian cancer and their families. |
| Alert Dog Mollie @mollie_dog RT @CancerHopeNet: Brilliant, hands-on way to provide support! #gyncsm https://t.co/IIBxDkXJ8b | |
| Christina Lizaso @btrfly12 RT @RieOfLetters: A6: A6: Family Caregiver Alliance offers a lot of online resources, including education, legal help, advocacy opportunities, and an online support group. It is important for national organizations to have outreach & engage advocates at the local level. #gyncsm |
| Dee Sparacio @womenofteal RT @LCooperHand: Your participation would involve 2-3 hours of your time through online surveys. Please contact (Lauren Hand) at handlc@upmc.edu 2/2 #gyncsm |
| Jillosopher, BSN, RN @jillosopher RT @GraceCampbellRN: I suspect that the LGBT community has been highly underserved re: I suspect that the LGBT community has been highly underserved re: support needs for their partners with gyn cancers. Another huge unmet need. #gyncsm https://t.co/HJont5NKY4 |
| Maggie Rogers @magthenomad RT @GraceCordovano: T1: T1: #Carepartners need access to information for care coordination. What forms/permissions need to be granted to allow carepartners to consistently speak on patients behalf & engage w/ care team. #gyncsm |
| Christina Lizaso @btrfly12 RT @GraceCampbellRN: I suspect that the LGBT community has been highly underserved re: I suspect that the LGBT community has been highly underserved re: support needs for their partners with gyn cancers. Another huge unmet need. #gyncsm https://t.co/HJont5NKY4 |
| Lauren Hand @LCooperHand Thanks everyone for joining. Really appreciate all the thoughtful tweets that will help us work on improving our care of caregivers! #gyncsm |
| Robin Martinez @RobinSmrtPtient TIL we need to encourage caregivers in finding and taking advantage of resources even when they feel they have all bases covered. Time and ongoing effort make care by one individual unfeasible. #gyncsm |
| Erica Bednar @EMBOSU TIL that there are significant gaps in what cargivers need/want, and what is available/accessible: much more to be done to help patients, families, and loved ones all get the care they need when dealing with cancer #gyncsm #endcancer https://t.co/478HZztjXK |
| Dee Sparacio @womenofteal RT @KathleenMaxian: #gyncsm T6 @WNYOCP mission is to provide supportive services to women with ovarian cancer and their families. |
| GYN Cancer | #GYNCSM @gyncsm Wonderful conversation today. The February #gyncsm chat topic will be "Let’s Talk - Communication" focusing on patient-doctor communication. |
| Tobey @BRCAinfo #caregiving #gyncsm https://t.co/hEZdl13ZJR |
| Maggie Rogers @magthenomad RT @ShereesePubHlth: I'd tell providers that caregivers suffer the same level of burnout that physicians experience & that it should a consideration when designing a care plan. #gyncsm |
| Dee Sparacio @womenofteal @LCooperHand We appreciate you joining us for this important discussion. #gyncsm |
| Rick Boulay,MD @journeycancer TIL. There are many resources available to assist caregivers in there most difficult role. #gyncsm https://t.co/gpadisOGd3 |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: Wonderful conversation today. The February #gyncsm chat topic will be "Let’s Talk - Communication" focusing on patient-doctor communication. |
| CancerDotNet @CancerDotNet @gyncsm For international patients: https://t.co/luuafM93Je #GynCSM |
| Enlightening Results 💡 @GraceCordovano Thanks for a great hour #gyncsm! Until next time |
| Christina Lizaso @btrfly12 RT @EMBOSU: TIL that there are significant gaps in what cargivers need/want, and what is available/accessible: TIL that there are significant gaps in what cargivers need/want, and what is available/accessible: much more to be done to help patients, families, and loved ones all get the care they need when dealing with cancer #gyncsm #endcancer https://t.co/478HZztjXK |
| KU Cancer Center @KUcancercenter RT @gyncsm: It is time to start gathering your closing thoughts. We like to use TIL: It is time to start gathering your closing thoughts. We like to use TIL: standing for Today I Learned.... #gyncsm |
| Christina Lizaso @btrfly12 RT @RobinSmrtPtient: TIL we need to encourage caregivers in finding and taking advantage of resources even when they feel they have all bases covered. Time and ongoing effort make care by one individual unfeasible. #gyncsm |
 | Ovarian Cancer Proj @WNYOCP #gyncsm We provide trusted evidence based information for women & family / caregivers https://t.co/3MbCgYC0lB |
| CancerDotNet @CancerDotNet RT @gyncsm: Wonderful conversation today. The February #gyncsm chat topic will be "Let’s Talk - Communication" focusing on patient-doctor communication. |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Glad I stopped by. Have a great remainder week everyone. #gyncsm https://t.co/4M8FqsV3bb |
| Dee Sparacio @womenofteal @garmischgirl @jillosopher True . Very seldom ask the caregiver how they are feeling. They are asked how the patient is doing. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Wonderful conversation today. The February #gyncsm chat topic will be "Let’s Talk - Communication" focusing on patient-doctor communication. |
| Dee Sparacio @womenofteal RT @journeycancer: TIL. There are many resources available to assist caregivers in there most difficult role. #gyncsm https://t.co/gpadisOGd3 |
| Hello_U👋🏼 @MommysCancer #caregivers https://t.co/cB36cuDUKZ |
| Christina Lizaso @btrfly12 @CancerDotNet Thanks for all the great resources and all you do for patients! #gyncsm |
| Dee Sparacio @womenofteal RT @WNYOCP: #gyncsm We provide trusted evidence based information for women & family / caregivers https://t.co/3MbCgYC0lB |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN TIL that we have much more work to do in supporting #carepartners and their loved ones. #gyncsm |
| Dr. Heidi Donovan @HeidiSDonovan I agree. This was a very thought-provoking, important discussion. #gyncsm https://t.co/o2abpsqgYp |
| Inspire @InspireIsHealth RT @gyncsm: Wonderful conversation today. The February #gyncsm chat topic will be "Let’s Talk - Communication" focusing on patient-doctor communication. |
| Maggie Rogers @magthenomad RT @EMBOSU: TIL that there are significant gaps in what cargivers need/want, and what is available/accessible: TIL that there are significant gaps in what cargivers need/want, and what is available/accessible: much more to be done to help patients, families, and loved ones all get the care they need when dealing with cancer #gyncsm #endcancer https://t.co/478HZztjXK |
| GYN Cancer | #GYNCSM @gyncsm Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| Jillosopher, BSN, RN @jillosopher Skipping TIL to share that 1) yesterday was 1 yr anniversary of hysterectomy/cancer dx. And 2) I’m going back to my accelerated BSN program next week after a one year cancer hiatus! #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters Thank you for sharing this. It is such an important point! This feeling of embarrassment or even shame can be particularly pronounced in certain cultures (for both the patient and the caregiver/partner). HCPs need to be aware of this. #gyncsm https://t.co/SDc2ZOxz1M |
| Rick Boulay,MD @journeycancer RT @HeidiSDonovan: I agree. This was a very thought-provoking, important discussion. #gyncsm https://t.co/o2abpsqgYp |
| Dee Sparacio @womenofteal TIL #carepartner is a good term and we need to communicate better the support and resources available for gyn cancer caregivers. #gyncsm |
| Christina Lizaso @btrfly12 Thanks so much for everyone who contributed and listened in. Thank you @LCooperHand for shining a light on this important topic. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: TIL #carepartner is a good term and we need to communicate better the support and resources available for gyn cancer caregivers. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Thanks so much for everyone who contributed and listened in. Thank you @LCooperHand for shining a light on this important topic. #gyncsm |
| Rick Boulay,MD @journeycancer RT @RieOfLetters: Thank you for sharing this. It is such an important point! This feeling of embarrassment or even shame can be particularly pronounced in certain cultures (for both the patient and the caregiver/partner). HCPs need to be aware of this. #gyncsm https://t.co/SDc2ZOxz1M |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @BRCAinfo: #caregiving #gyncsm https://t.co/hEZdl13ZJR |
| GYN Cancer | #GYNCSM @gyncsm Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @womenofteal: TIL #carepartner is a good term and we need to communicate better the support and resources available for gyn cancer caregivers. #gyncsm |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @DrMarkham @journeycancer @DrBeckerSchutte |
| Jillosopher, BSN, RN @jillosopher Even just that would go so far! My gyn onc always asked how my husband as doing. I do appreciated that. As did he. #gyncsm https://t.co/8iD2fzdKId |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @LCooperHand: If you are a caregiver of or a patient with gyn cancer interested in sharing more ideas about caregiving in a formal survey... 1/2 #gyncsm |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Rick Boulay,MD @journeycancer Thanks Dee and Christina for another wonderful chat. Looking forward to seeing you all next month! #GYNCSM |
| KU Cancer Center @KUcancercenter If you weren’t able to catch the conversation in tonight’s Twitter Chat about caregiver needs and support, remember you can check it any time! Just go to #GYNCSM and read the thread. https://t.co/FLTI9eUwSs |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN Congratulations! What a milestone. Best of luck in your BSN program! #gyncsm https://t.co/2YlIqhHZU8 |
| Rick Boulay,MD @journeycancer RT @gyncsm: Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm |
| Dee Sparacio @womenofteal So happy to see Twiends and newcomers. Thanks for joining us. Thanks to @btrfly12 for keeping this fast paced convo on track. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thank you @LCooperHand for all you are doing for patients and carepartners. Thanks to all for being part of this community. #gyncsm |
| Erica Bednar @EMBOSU Thank you all for a great chat, and for sharing experiences & lessons learned! Have a great evening everyone #gyncsm |
| Inspire @InspireIsHealth RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters TIL more about individual caregiver needs and supports. As always, I am so grateful that I can be here with you all. Until next time! <3 #gyncsm |
| Jillosopher, BSN, RN @jillosopher @journeycancer Thank you!! I’m halfway. Scary that I’ve been away longer than I was in it. But, onward. #gyncsm |
| Christina Lizaso @btrfly12 @jillosopher Exciting! Thanks for sharing :) #gyncsm |
| KU Cancer Center @KUcancercenter RT @gyncsm: Wonderful conversation today. The February #gyncsm chat topic will be "Let’s Talk - Communication" focusing on patient-doctor communication. |
| Dee Sparacio @womenofteal T6 left off my list of resources: @theNCI https://t.co/2E6YfNKU1E and @livestrong https://t.co/j96odubbP4 #gyncsm |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN Thank you all for a wonderful conversation! So much to think about. #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters @jillosopher Congratulations!! This is amazing news all around! #gyncsm https://t.co/yEuTylxfbd |
| Christina Lizaso @btrfly12 RT @womenofteal: T6 left off my list of resources: T6 left off my list of resources: @theNCI https://t.co/2E6YfNKU1E and @livestrong https://t.co/j96odubbP4 #gyncsm |
| Sarah Belcher @SarahMBelcher @jillosopher Wow - huge personal milestone & a giant step back into your professional #nursing journey. Wishing you the very best! #gyncsm |
| Jillosopher, BSN, RN @jillosopher Thanks all, for a great chat. ❤️ #gyncsm |
| Brandi Preston @_brandiii @gyncsm I lost my mom to BRCA related bc. For me, it would’ve been helpful to meet other kids who had a sick parent, lost a parent, and build a friendship. Priceless to have a friend that understand what it’s like to not have a parent at graduations, weddings, etc #GYNCSM |
| Dee Sparacio @womenofteal @KUcancercenter We will also share a link to the transcript and blog post later this evening. Thanks for joining us. #gyncsm |
| Christina Lizaso @btrfly12 @_brandiii Sorry for your loss. Great point. No one gets it until you've lost a parent. No sub for someone else who gets it. #gyncsm |
#GynCSM content from Twitter.