#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
– ().
See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 #gyncsm |
 | NCI Cancer Stats @NCICancerStats The median age at cervical #cancer diagnosis is 50. Learn more about this cancer here: https://t.co/L0vlQRQr96 #GynCSM https://t.co/niiDaUxcsD |
| GYN Cancer | #GYNCSM @gyncsm Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We start out with 10 min of intro's - Please take a moment to introduce yourself. #gyncsm |
 | Rick Boulay,MD @journeycancer RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| Dee Sparacio @womenofteal RT @gyncsm: We start out with 10 min of intro's - Please take a moment to introduce yourself. #gyncsm |
| Dee Sparacio @womenofteal Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger & co-moderator #gyncsm |
 | Rie Lopez, MPH (she/her) @RieOfLetters For the next hour, I will be with the lovely #gyncsm community. https://t.co/0c1e4eWIiq |
 | Suzie Siegel @SuzieSiegel RT @gyncsm: You can read over tonight’s #gyncsm topics questions before we get started: You can read over tonight’s #gyncsm topics questions before we get started: https://t.co/lekD11DNcA |
 | Christina Lizaso @btrfly12 HI All: ) I'm Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm |
| Dee Sparacio @womenofteal @RieOfLetters So glad you are joining us! #gyncsm |
 | Ginger Riley ~Eternal Optimist~ @gingerly21 RT @NCICancerStats: The median age at cervical #cancer diagnosis is 50. Learn more about this cancer here: The median age at cervical #cancer diagnosis is 50. Learn more about this cancer here: https://t.co/L0vlQRQr96 #GynCSM https://t.co/niiDaUxcsD |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. :) #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. :) #gyncsm |
| Rick Boulay,MD @journeycancer Hey Everyone. Rick Boulay. Gyn Oncologist. Allentown PA. #gyncsm |
| Dee Sparacio @womenofteal @journeycancer Hi Rick! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Pls continue intro's & welcomes - we'll start in w/ the "ground rules" :) #gyncsm |
 | Tobey @BRCAinfo Hi #gyncsm happy to be here & Support you. |
| Dee Sparacio @womenofteal @temkins Hi Sarah, Thank you so much for join us tonight! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Pls continue intro's & welcomes - we'll start in w/ the "ground rules" :) #gyncsm |
| Dee Sparacio @womenofteal @BRCAinfo Waving Hello Tobey! Glad to have you here. #gyncsm |
| Rick Boulay,MD @journeycancer Hey Dee. Hey Christina. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
 | Erica Bednar @EMBOSU Hi all, I'm Erica and I'm a Genetic counselor at @MDAndersonNews focusing on hereditary gynecologic cancers #gyncsm #endcancer https://t.co/RTqxo0awMJ |
| Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| Dee Sparacio @womenofteal Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #gyncsm |
| Suzie Siegel @SuzieSiegel I'm a 16-year survivor of gyn #leiomyosarcoma. #gyncsm |
 | Inspire @InspireIsHealth RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| Dee Sparacio @womenofteal @EMBOSU @MDAndersonNews Welcome back Erica. #gyncsm |
| Rick Boulay,MD @journeycancer RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| Dee Sparacio @womenofteal @SuzieSiegel Hi Suzie Thanks for joining us! #gyncsm |
| Inspire @InspireIsHealth Hello to #gyncsm, John Novack here from Inspire. |
| Dee Sparacio @womenofteal Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal info #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience. |
 | Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN #gyncsm Hi, all! Grace Campbell here. Probably just listening in tonight; glad to be here! |
| Tobey @BRCAinfo @womenofteal Happy to join ty - I’ve missed the chats ~ busy! #gyncsm |
| Dee Sparacio @womenofteal #gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest |
| Dee Sparacio @womenofteal Hi John @teaminspire and @GraceCampbellRN #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Great to have you all here. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
 | Robin Martinez @RobinSmrtPtient I'm sort of here...hi to #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Great to have you all here. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
| Dee Sparacio @womenofteal Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat . Greatly appreciated. |
 | Ishwaria Subbiah, MD MS FASCO @IshwariaMD @gyncsm Hi all! #PalliativeCare and Med onc doc from Houston. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight's #gyncsm topic is: “Let’s Define Value of Care” |
| Dee Sparacio @womenofteal @IshwariaMD @gyncsm Thanks so much for joining us! #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters Hi everyone! It's been too long. Rie here on this somewhat humid MA evening. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #gyncsm |
| Dee Sparacio @womenofteal In case you missed it check out “The Needs of Women Treated for Ovarian Cancer: Results From a #gyncsm Twitter Chat [4/26/18] w/ @TLHagan , @btrfly12, @subatomicdoc @DrAttai @drdonsdizon @mtmdphd and others https://t.co/BbBuBeuBL1 |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat . Greatly appreciated. |
| Dee Sparacio @womenofteal RT @gyncsm: As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/lekD11DNcA |
| Rick Boulay,MD @journeycancer RT @gyncsm: Tonight's #gyncsm topic is: Tonight's #gyncsm topic is: “Let’s Define Value of Care” |
| Dee Sparacio @womenofteal RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/lekD11DNcA |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @journeycancer @gyncsm Hey Rick! Great to e-see you after#ASCO18. #gyncsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/lekD11DNcA |
| GYN Cancer | #GYNCSM @gyncsm We are pleased to have gynecologic oncologist, Dr. Sarah Temkin (@temkins ) join us as a special guest for tonight’s chat. We also appreciate all the great info she shares to the #gyncsm feed |
| Dee Sparacio @womenofteal RT @gyncsm: We are pleased to have gynecologic oncologist, Dr. Sarah Temkin (@temkins ) join us as a special guest for tonight’s chat. We also appreciate all the great info she shares to the #gyncsm feed |
| Christina Lizaso @btrfly12 RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/lekD11DNcA |
| Rick Boulay,MD @journeycancer RT @womenofteal: In case you missed it check out “The Needs of Women Treated for Ovarian Cancer: In case you missed it check out “The Needs of Women Treated for Ovarian Cancer: Results From a #gyncsm Twitter Chat [4/26/18] w/ @TLHagan , @btrfly12, @subatomicdoc @DrAttai @drdonsdizon @mtmdphd and others https://t.co/BbBuBeuBL1 |
| GYN Cancer | #GYNCSM @gyncsm T1a: There been a lot of discussion in recent years about "value of care". Why is it important? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T1a: T1a: There been a lot of discussion in recent years about "value of care". Why is it important? #gyncsm |
| Inspire @InspireIsHealth RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/lekD11DNcA |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD Happening now - #gyncsm chat. A great lineup of questions on the #value of care among the gyn #cancer populations. Article: The "Value" of value in gynecologic oncology practice in the United States” https://t.co/XyiKRYhWju https://t.co/NihLHdvKk3 |
| Christina Lizaso @btrfly12 RT @gyncsm: T1a: T1a: There been a lot of discussion in recent years about "value of care". Why is it important? #gyncsm |
| Christina Lizaso @btrfly12 RT @IshwariaMD: Happening now - #gyncsm chat. A great lineup of questions on the #value of care among the gyn #cancer populations. Article: The "Value" of value in gynecologic oncology practice in the United States” https://t.co/XyiKRYhWju https://t.co/NihLHdvKk3 |
| Dee Sparacio @womenofteal RT @IshwariaMD: Happening now - #gyncsm chat. A great lineup of questions on the #value of care among the gyn #cancer populations. Article: The "Value" of value in gynecologic oncology practice in the United States” https://t.co/XyiKRYhWju https://t.co/NihLHdvKk3 |
| Tobey @BRCAinfo @gyncsm T1a Doctors & Patients need to be on the same page of “value of care” For Docs it’s a business for patients it’s valuable treatment #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T1b: How do YOU define the "value of care" you give and/or receive as a patient, loved one, healthcare professional, etc? #gyncsm |
| Inspire @InspireIsHealth RT @IshwariaMD: Happening now - #gyncsm chat. A great lineup of questions on the #value of care among the gyn #cancer populations. Article: The "Value" of value in gynecologic oncology practice in the United States” https://t.co/XyiKRYhWju https://t.co/NihLHdvKk3 |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN #gyncsm https://t.co/0BfqoQmnXN |
| Tobey @BRCAinfo @journeycancer @womenofteal TY #gyncsm |
 | Enlightening Results 💡 @GraceCordovano Peeking in to say hello to all my #gyncsm friends! Wishing you a wonderful chat. Until next time! https://t.co/GpSJLTtwDB |
| Rick Boulay,MD @journeycancer RT @IshwariaMD: Happening now - #gyncsm chat. A great lineup of questions on the #value of care among the gyn #cancer populations. Article: The "Value" of value in gynecologic oncology practice in the United States” https://t.co/XyiKRYhWju https://t.co/NihLHdvKk3 |
| Dee Sparacio @womenofteal T1a This year President’s Panel report- discussing cancer drug cost and value https://t.co/ChuTQtWLIf #gyncsm https://t.co/o1srtCZ4YF |
| Rie Lopez, MPH (she/her) @RieOfLetters @journeycancer Good to see you, Rick #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm RT @journeycancer Health care value, or the improvement due to treatment per cost of treatment is important as health care costs are 20% of GDP and may bankrupt us. |
| Dee Sparacio @womenofteal #gyncsm https://t.co/gF8PVBZHHd |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm RT @journeycancer Health care value, or the improvement due to treatment per cost of treatment is important as health care costs are 20% of GDP and may bankrupt us. |
| Christina Lizaso @btrfly12 RT @womenofteal: T1a This year President’s Panel report- discussing cancer drug cost and value https://t.co/ChuTQtWLIf #gyncsm https://t.co/o1srtCZ4YF |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @gyncsm T1a. There’s a slow culture shift in cancer where it’s no longer just about “will drug X make me live longer” but “will drug X make me live better.” And how you the patient define “better” is your very own definition of “value” - how’s that for #PrecisionMedicine! #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T1b: T1b: How do YOU define the "value of care" you give and/or receive as a patient, loved one, healthcare professional, etc? #gyncsm |
| Tobey @BRCAinfo @gyncsm T1b the most “valuable care” to me personally is when the healthcare provider LISTENS #gyncsm |
| Christina Lizaso @btrfly12 RT @IshwariaMD: @gyncsm T1a. There’s a slow culture shift in cancer where it’s no longer just about “will drug X make me live longer” but “will drug X make me live better.” And how you the patient define “better” is your very own definition of “value” - how’s that for #PrecisionMedicine! #gyncsm |
| Christina Lizaso @btrfly12 RT @BRCAinfo: @gyncsm T1b the most “valuable care” to me personally is when the healthcare provider LISTENS #gyncsm |
| Rick Boulay,MD @journeycancer My definition is improvement In Quality of life per cost of intervention. #GynCSM https://t.co/mXYAX2s6gd |
| Dee Sparacio @womenofteal T1a If EMRs spoke to each other and results shared that might reduce some costs. #gyncsm https://t.co/wHRXVS8bKW |
| Rick Boulay,MD @journeycancer RT @womenofteal: T1a This year President’s Panel report- discussing cancer drug cost and value https://t.co/ChuTQtWLIf #gyncsm https://t.co/o1srtCZ4YF |
| Dee Sparacio @womenofteal RT @IshwariaMD: @gyncsm T1a. There’s a slow culture shift in cancer where it’s no longer just about “will drug X make me live longer” but “will drug X make me live better.” And how you the patient define “better” is your very own definition of “value” - how’s that for #PrecisionMedicine! #gyncsm |
| Christina Lizaso @btrfly12 RT @journeycancer: My definition is improvement In Quality of life per cost of intervention. #GynCSM https://t.co/mXYAX2s6gd |
| Suzie Siegel @SuzieSiegel @IshwariaMD @gyncsm That last sentence is so important. I think I have a very good life, but some people would be very unhappy with what I deal with. #gyncsm |
 | Tamara Peabody @Maples85forever RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. :) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Topic 2 (T2:) coming up... https://t.co/lekD11DNcA #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/i28O4Om6x0 |
| Rie Lopez, MPH (she/her) @RieOfLetters "Value of care" has become increasingly significant as the rise of medical costs for treatments continue to rise. As a patient, I want the most effective treatment for the least cost. #gyncsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @temkins Yes! So important and encouraging that we as a profession and field (oncology) value de-escalation as much as new treatments! #gyncsm |
| Dee Sparacio @womenofteal T1b For me “value of care” means a way forward as a cancer patient that allows me to find the best information on treatments that get the best outcomes for the longest and most fulfilling life. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2: In addition to price, what other information would you need in order to make a judgment on the value of the care you receive (procedures/chemo/visits/etc.)? #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/j1c84vYOdV |
| Suzie Siegel @SuzieSiegel T1b. I value care in which the professional listens and does the best they can under the circumstances, even if things don't always work out. #gyncsm |
| Dee Sparacio @womenofteal RT @SuzieSiegel: T1b. I value care in which the professional listens and does the best they can under the circumstances, even if things don't always work out. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T2: T2: In addition to price, what other information would you need in order to make a judgment on the value of the care you receive (procedures/chemo/visits/etc.)? #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/1hRt559evw |
| Christina Lizaso @btrfly12 RT @SuzieSiegel: T1b. I value care in which the professional listens and does the best they can under the circumstances, even if things don't always work out. #gyncsm |
 | CancerDotNet @CancerDotNet @gyncsm #T2 Here's some info for patients about taking charge of their care, being a self-advocate, and talking with their medical team: https://t.co/I4YmOnlBng #gyncsm |
 | Karen Galler @Karenrosegt RT @SuzieSiegel: T1b. I value care in which the professional listens and does the best they can under the circumstances, even if things don't always work out. #gyncsm |
 | Mike Thompson, MD, PhD, FASCO @mtmdphd RT @womenofteal: In case you missed it check out “The Needs of Women Treated for Ovarian Cancer: In case you missed it check out “The Needs of Women Treated for Ovarian Cancer: Results From a #gyncsm Twitter Chat [4/26/18] w/ @TLHagan , @btrfly12, @subatomicdoc @DrAttai @drdonsdizon @mtmdphd and others https://t.co/BbBuBeuBL1 |
| Dee Sparacio @womenofteal T2 I look for the treatment( std of care or clinical trial) that will provide the best outcome for me - OS or PFS and less side effects when possible and hopefully a good price and close to home. #gyncsm |
 | Amy Byer Shainman @BRCAresponder RT @gyncsm: We are pleased to have gynecologic oncologist, Dr. Sarah Temkin (@temkins ) join us as a special guest for tonight’s chat. We also appreciate all the great info she shares to the #gyncsm feed |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @gyncsm T1b: “value of care” is a very personal definition - Is your treatment or survivorship plan in line w what’s important to you in terms of cancer outcomes, day to day life, etc? The tx plans can’t be one size fits all (or most!). #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm @CancerDotNet Thanks for sharing resources and promoting today's #gyncsm discussion. |
| Dee Sparacio @womenofteal #gyncsm https://t.co/EPRFfwJ4qs |
| CancerDotNet @CancerDotNet @gyncsm #T2 cont. and some more info about making decisions about care: https://t.co/bcgbmOgPyY #gyncsm |
| Suzie Siegel @SuzieSiegel RT @CancerDotNet: @gyncsm #T2 Here's some info for patients about taking charge of their care, being a self-advocate, and talking with their medical team: https://t.co/I4YmOnlBng #gyncsm |
| Tobey @BRCAinfo RT @RieOfLetters: "Value of care" has become increasingly significant as the rise of medical costs for treatments continue to rise. As a patient, I want the most effective treatment for the least cost. #gyncsm |
| Christina Lizaso @btrfly12 RT @IshwariaMD: @gyncsm T1b: @gyncsm T1b: “value of care” is a very personal definition - Is your treatment or survivorship plan in line w what’s important to you in terms of cancer outcomes, day to day life, etc? The tx plans can’t be one size fits all (or most!). #gyncsm |
| Rick Boulay,MD @journeycancer Opportunity costs. Effectivity. Side effects and medicines required to control them, months lost due to not using an effective drug. Quality of life. #GYNCSM https://t.co/JVaKRpgfvQ |
| Dee Sparacio @womenofteal RT @IshwariaMD: @gyncsm T1b: @gyncsm T1b: “value of care” is a very personal definition - Is your treatment or survivorship plan in line w what’s important to you in terms of cancer outcomes, day to day life, etc? The tx plans can’t be one size fits all (or most!). #gyncsm |
| Amy Byer Shainman @BRCAresponder RT @womenofteal: #gyncsm https://t.co/EPRFfwJ4qs |
| Rie Lopez, MPH (she/her) @RieOfLetters A2: Value of care takes into consideration that patients will be treated well, with compassion and #empathy. Cost savings are irrelevant if I am not acknowledged as a human with goals for my life that may change how I want to pursue treatment. #gyncsm |
| Rick Boulay,MD @journeycancer RT @gyncsm: T2: T2: In addition to price, what other information would you need in order to make a judgment on the value of the care you receive (procedures/chemo/visits/etc.)? #gyncsm |
| Amy Byer Shainman @BRCAresponder RT @CancerDotNet: @gyncsm #T2 Here's some info for patients about taking charge of their care, being a self-advocate, and talking with their medical team: https://t.co/I4YmOnlBng #gyncsm |
| Dee Sparacio @womenofteal RT @CancerDotNet: @gyncsm #T2 cont. and some more info about making decisions about care: @gyncsm #T2 cont. and some more info about making decisions about care: https://t.co/bcgbmOgPyY #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/t0wHH324Mr |
| Tobey @BRCAinfo RT @IshwariaMD: @gyncsm T1b: @gyncsm T1b: “value of care” is a very personal definition - Is your treatment or survivorship plan in line w what’s important to you in terms of cancer outcomes, day to day life, etc? The tx plans can’t be one size fits all (or most!). #gyncsm |
 | Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: T1a: T1a: There been a lot of discussion in recent years about "value of care". Why is it important? #gyncsm |
| Amy Byer Shainman @BRCAresponder RT @CancerDotNet: @gyncsm #T2 cont. and some more info about making decisions about care: @gyncsm #T2 cont. and some more info about making decisions about care: https://t.co/bcgbmOgPyY #gyncsm |
| Dee Sparacio @womenofteal Good point! #gyncsm https://t.co/gF5ckyrBy4 |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @journeycancer: Opportunity costs. Effectivity. Side effects and medicines required to control them, months lost due to not using an effective drug. Quality of life. #GYNCSM https://t.co/JVaKRpgfvQ |
| Tobey @BRCAinfo RT @RieOfLetters: A2: A2: Value of care takes into consideration that patients will be treated well, with compassion and #empathy. Cost savings are irrelevant if I am not acknowledged as a human with goals for my life that may change how I want to pursue treatment. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @womenofteal: #gyncsm https://t.co/EPRFfwJ4qs |
| Dee Sparacio @womenofteal Agree 100%! #gyncsm https://t.co/Em9jmGbYyw |
| Tobey @BRCAinfo @RieOfLetters I agree 💯 #gyncsm |
 | Lee @WhatsInURGenes T2 - Price wouldn’t be number one for me. It would be how can I make this easier on my loved ones. #lynchsyndrome #gyncsm https://t.co/rQRMbPktHV |
| Lee @WhatsInURGenes RT @gyncsm: T2: T2: In addition to price, what other information would you need in order to make a judgment on the value of the care you receive (procedures/chemo/visits/etc.)? #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T3: What are Quality-adjusted life years (QALY)? How do we measure outcomes? What elements are large medical organizations (incl. ASCO and SGO) including in their recommendations on value of care? #gyncsm |
 | #GenCSM @GenC_SM Happening NOW>>>> #gyncsm https://t.co/aIiK3xbMpZ |
 | Lee ❤️🇺🇸 @NJIvorygirl RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/lekD11DNcA |
| Christina Lizaso @btrfly12 RT @WhatsInURGenes: T2 - Price wouldn’t be number one for me. It would be how can I make this easier on my loved ones. #lynchsyndrome #gyncsm https://t.co/rQRMbPktHV |
| Lee ❤️🇺🇸 @NJIvorygirl RT @womenofteal: Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat . Greatly appreciated. |
| Lee ❤️🇺🇸 @NJIvorygirl RT @gyncsm: Great to have you all here. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T3: T3: What are Quality-adjusted life years (QALY)? How do we measure outcomes? What elements are large medical organizations (incl. ASCO and SGO) including in their recommendations on value of care? #gyncsm |
 | Matthew Katz, MD 🟦 @subatomicdoc Good evening! Sorry to join late everyone, I hope you're well. Matt Katz in radiation oncology here - I'll be lurking trying to catch up #gyncsm |
| Suzie Siegel @SuzieSiegel Our definitions of value may change over time. Talked today to a uterine #leiomyosarcoma patient. Her insurance & care may have seemed like good value for years, but now her insurance won't cover a visit to a #sarcoma specialist. #gyncsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @gyncsm T2: side effects, duration of treatment, effect on day-to-day activities/work/social life. Can I keep working or no? Will all these changes be temporary or long term? ... #gyncsm |
| #GenCSM @GenC_SM RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/lekD11DNcA |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: T1a This year President’s Panel report- discussing cancer drug cost and value https://t.co/ChuTQtWLIf #gyncsm https://t.co/o1srtCZ4YF |
| Dee Sparacio @womenofteal @temkins I am lucky - I live within 30 minutes - 1 and a half hours from 4 NCI comprehensive cancer centers. #gyncsm https://t.co/ObPBJ0DQzu |
| Matthew Katz, MD 🟦 @subatomicdoc RT @IshwariaMD: @gyncsm T1b: @gyncsm T1b: “value of care” is a very personal definition - Is your treatment or survivorship plan in line w what’s important to you in terms of cancer outcomes, day to day life, etc? The tx plans can’t be one size fits all (or most!). #gyncsm |
| Suzie Siegel @SuzieSiegel @temkins I wish more people had insurance that would allow for a second opinion. #gyncsm #sarcoma |
| Dee Sparacio @womenofteal #gyncsm https://t.co/BmjxXxwwRw |
| Amy Byer Shainman @BRCAresponder Hi #gyncsm Amy @BRCAresponder here a bit late. Mostly lurking and retweeting. |
| Christina Lizaso @btrfly12 T3 related reading: ASCO Value Framework https://t.co/cfyRCnvqIc and https://t.co/e83IPE7eHT #gyncsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @temkins 👆👆what she said x 100! Get 2nd or even 3rd opinions! Travel to get them if needed. So important to get expert opinions especially if clinical trials may be an option! #gyncsm |
| Dee Sparacio @womenofteal @SuzieSiegel I hear stories like that too. A shame. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @SuzieSiegel: Our definitions of value may change over time. Talked today to a uterine #leiomyosarcoma patient. Her insurance & care may have seemed like good value for years, but now her insurance won't cover a visit to a #sarcoma specialist. #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl T1a - The value of care is important from the moment the #CWord is out on the table. It encompasses every step in the process. #lynchsyndrome #gyncsm https://t.co/4xW6qJFPJw |
| Rick Boulay,MD @journeycancer Essentially years of life added due to cancer treatment but adjusted by functional status. Is it really worth extending life without living? #GYNCSM https://t.co/vYzOirVNm1 |
| Lee ❤️🇺🇸 @NJIvorygirl RT @gyncsm: T1a: T1a: There been a lot of discussion in recent years about "value of care". Why is it important? #gyncsm |
| Amy Byer Shainman @BRCAresponder RT @btrfly12: T3 related reading: T3 related reading: ASCO Value Framework https://t.co/cfyRCnvqIc and https://t.co/e83IPE7eHT #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/L28ORZhAxu |
| Rie Lopez, MPH (she/her) @RieOfLetters Did you know about QALY? I am learning new things in the #gyncsm chat tonight. https://t.co/u1FxGuQY3g |
| Christina Lizaso @btrfly12 T3: More related reading - Value: The Next Frontier in Cancer Care https://t.co/p2EsyqxS4T #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @SuzieSiegel I agree. I do see my patients' priorities and perspectives change as the move through different stages of the cancer experience. #gyncsm |
| Christina Lizaso @btrfly12 RT @journeycancer: Essentially years of life added due to cancer treatment but adjusted by functional status. Is it really worth extending life without living? #GYNCSM https://t.co/vYzOirVNm1 |
| Erica Bednar @EMBOSU T3: just today I read an interesting review of QALY as a measure of healthcare outcome and cost...and the controversy over its use. recently published: https://t.co/QmTybMpcVy #gyncsm https://t.co/bMibOWSrlP |
| Dee Sparacio @womenofteal RT @IshwariaMD: @temkins 👆👆what she said x 100! Get 2nd or even 3rd opinions! Travel to get them if needed. So important to get expert opinions especially if clinical trials may be an option! #gyncsm |
| Dee Sparacio @womenofteal RT @journeycancer: Essentially years of life added due to cancer treatment but adjusted by functional status. Is it really worth extending life without living? #GYNCSM https://t.co/vYzOirVNm1 |
| Tobey @BRCAinfo RT @journeycancer: Essentially years of life added due to cancer treatment but adjusted by functional status. Is it really worth extending life without living? #GYNCSM https://t.co/vYzOirVNm1 |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @womenofteal @temkins Trying to guess here you live, @womenofteal - Philadelphia, NY area? #gyncsm |
| Dee Sparacio @womenofteal @ASCO report >>>> value in cancer care is achieved when “patients receive the right treatments, at the right time, for the right price.” #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T3: More related reading - Value: T3: More related reading - Value: The Next Frontier in Cancer Care https://t.co/p2EsyqxS4T #gyncsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD RT @EMBOSU: T3: T3: just today I read an interesting review of QALY as a measure of healthcare outcome and cost...and the controversy over its use. recently published: https://t.co/QmTybMpcVy #gyncsm https://t.co/bMibOWSrlP |
| Rick Boulay,MD @journeycancer RT @SuzieSiegel: Our definitions of value may change over time. Talked today to a uterine #leiomyosarcoma patient. Her insurance & care may have seemed like good value for years, but now her insurance won't cover a visit to a #sarcoma specialist. #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: T3: T3: just today I read an interesting review of QALY as a measure of healthcare outcome and cost...and the controversy over its use. recently published: https://t.co/QmTybMpcVy #gyncsm https://t.co/bMibOWSrlP |
| Christina Lizaso @btrfly12 T3: Measuring outcomes and value isn't going to be easy but I'm glad to see a movement to try. And that the movement recognizes cost is only a piece of the puzzle. #gyncsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD RT @btrfly12: T3: More related reading - Value: T3: More related reading - Value: The Next Frontier in Cancer Care https://t.co/p2EsyqxS4T #gyncsm |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN This is so important! #gyncsm https://t.co/Wv5C0V7hdy |
| Dee Sparacio @womenofteal @IshwariaMD @temkins Good guess - Central NJ #gyncsm |
| Tobey @BRCAinfo RT @womenofteal: @ASCO report >>>> value in cancer care is achieved when “patients receive the right treatments, at the right time, for the right price.” #gyncsm |
| Suzie Siegel @SuzieSiegel @temkins I realize there have to be definitions, but for many of us, perfect health is not our only definition of a valuable year. #gyncsm |
| Rick Boulay,MD @journeycancer RT @btrfly12: T3 related reading: T3 related reading: ASCO Value Framework https://t.co/cfyRCnvqIc and https://t.co/e83IPE7eHT #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: T3: T3: just today I read an interesting review of QALY as a measure of healthcare outcome and cost...and the controversy over its use. recently published: https://t.co/QmTybMpcVy #gyncsm https://t.co/bMibOWSrlP |
| Dee Sparacio @womenofteal #gyncsm https://t.co/PVPnYPbBnP |
| Christina Lizaso @btrfly12 RT @subatomicdoc: @SuzieSiegel I agree. I do see my patients' priorities and perspectives change as the move through different stages of the cancer experience. #gyncsm |
 | Kathy @KathySmaffy RT @MDAndersonNews: Study led by MD Anderson and @MethodistHosp finds Calcitriol may help with #ovariancancer survival: Study led by MD Anderson and @MethodistHosp finds Calcitriol may help with #ovariancancer survival: https://t.co/3ud6MM94uN #gyncsm #endcancer |
| Christina Lizaso @btrfly12 RT @SuzieSiegel: Our definitions of value may change over time. Talked today to a uterine #leiomyosarcoma patient. Her insurance & care may have seemed like good value for years, but now her insurance won't cover a visit to a #sarcoma specialist. #gyncsm |
| Dee Sparacio @womenofteal I agree . #gyncsm https://t.co/gXk7SmKjEN |
| Christina Lizaso @btrfly12 RT @womenofteal: @ASCO report >>>> value in cancer care is achieved when “patients receive the right treatments, at the right time, for the right price.” #gyncsm |
 | Blue Short Film @BlueShortFilm The latest Blue Short Film: Cancer on Twitter! https://t.co/QNoqUGCcdv Thanks to @CancerNetwrk @SHAREing @WinshipAtEmory #oncology #gyncsm |
| Dee Sparacio @womenofteal T3 : @sloan_kettering has Abacus a drug pricing lab and tool https://t.co/7apInVlXK1 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Topic 4 (T4:) coming up... https://t.co/lekD11DNcA #gyncsm |
| Tobey @BRCAinfo @womenofteal @ASCO Maybe the price of treatment should be based on the outcome! #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: T3 : T3 : @sloan_kettering has Abacus a drug pricing lab and tool https://t.co/7apInVlXK1 #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @womenofteal @sloan_kettering Nice job @sloan_kettering ! #gyncsm |
| Dee Sparacio @womenofteal Now that would be a different. #gyncsm https://t.co/bP4uOJBqfK |
| Lee ❤️🇺🇸 @NJIvorygirl T1b - By trying to lift a burden. I keep a binder of everything. Makes it easier for the patient, drs & family (my sister’s cancer or mine) It helps so you can refer to office visits, bloodwork, tests results, feelings, what worked or didn’t. #gyncsm https://t.co/y8b6p0PDOZ |
| Lee ❤️🇺🇸 @NJIvorygirl RT @gyncsm: T1b: T1b: How do YOU define the "value of care" you give and/or receive as a patient, loved one, healthcare professional, etc? #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @gyncsm: #gyncsm RT @journeycancer Health care value, or the improvement due to treatment per cost of treatment is important as health care costs are 20% of GDP and may bankrupt us. |
| GYN Cancer | #GYNCSM @gyncsm T4: How are rising drug, immunotherapy and targeted therapy prices impacting the evaluation of which treatments are of value? How have rising drug costs impacted you? #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @gyncsm: Topic 2 (T2:) coming up... https://t.co/lekD11DNcA #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @gyncsm: T2: T2: In addition to price, what other information would you need in order to make a judgment on the value of the care you receive (procedures/chemo/visits/etc.)? #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @btrfly12: T3: More related reading - Value: T3: More related reading - Value: The Next Frontier in Cancer Care https://t.co/p2EsyqxS4T #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/VtpKPAcnme |
| Tobey @BRCAinfo @womenofteal Might have better outcomes >>> shrugs here #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @NJIvorygirl: T1b - By trying to lift a burden. I keep a binder of everything. Makes it easier for the patient, drs & family (my sister’s cancer or mine) It helps so you can refer to office visits, bloodwork, tests results, feelings, what worked or didn’t. #gyncsm https://t.co/y8b6p0PDOZ |
| Lee ❤️🇺🇸 @NJIvorygirl RT @gyncsm: T3: T3: What are Quality-adjusted life years (QALY)? How do we measure outcomes? What elements are large medical organizations (incl. ASCO and SGO) including in their recommendations on value of care? #gyncsm |
| Christina Lizaso @btrfly12 Everything that goes into the Value of Care discussion in healthcare is not easy for me to wrap my brain around. Grateful for @FacingOurRisk article: https://t.co/Jd6dZOiCKd #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T4: T4: How are rising drug, immunotherapy and targeted therapy prices impacting the evaluation of which treatments are of value? How have rising drug costs impacted you? #gyncsm |
| Suzie Siegel @SuzieSiegel @BRCAinfo @womenofteal @ASCO I disagree because sometimes doctors do the best they can & the outcome isn't great. I have significant problems from treatment, but AFAIK, they aren't the result of bad care or medical errors. #gyncsm |
| Christina Lizaso @btrfly12 RT @NJIvorygirl: T1b - By trying to lift a burden. I keep a binder of everything. Makes it easier for the patient, drs & family (my sister’s cancer or mine) It helps so you can refer to office visits, bloodwork, tests results, feelings, what worked or didn’t. #gyncsm https://t.co/y8b6p0PDOZ |
| CancerDotNet @CancerDotNet #gyncsm #cost #drugcosts https://t.co/XuI2pA2aGL |
| Dee Sparacio @womenofteal T4 this recent article talks clinical benefits/ cost of Car-T cell therapy https://t.co/eRgA9TxfhD via @ascopost #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Everything that goes into the Value of Care discussion in healthcare is not easy for me to wrap my brain around. Grateful for @FacingOurRisk article: https://t.co/Jd6dZOiCKd #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm - https://t.co/R9V9gWoj6H |
| Rie Lopez, MPH (she/her) @RieOfLetters @womenofteal Now, I am thinking of all the money I could have saved over the last couple of years. 🤣 It is an interesting thought though. It reminds me a bit of bonuses. #gyncsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @gyncsm I cringe every time I read a study about maintenance immunotherapy or targeted therapy where the patient continues it every few weeks (for life) - none of those studies go into the out of pocket costs and consequences of indefinite treatment! #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T4: T4: How are rising drug, immunotherapy and targeted therapy prices impacting the evaluation of which treatments are of value? How have rising drug costs impacted you? #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @btrfly12: #gyncsm - https://t.co/R9V9gWoj6H |
| Matthew Katz, MD 🟦 @subatomicdoc RT @NJIvorygirl: T1b - By trying to lift a burden. I keep a binder of everything. Makes it easier for the patient, drs & family (my sister’s cancer or mine) It helps so you can refer to office visits, bloodwork, tests results, feelings, what worked or didn’t. #gyncsm https://t.co/y8b6p0PDOZ |
| Matthew Katz, MD 🟦 @subatomicdoc RT @IshwariaMD: @gyncsm I cringe every time I read a study about maintenance immunotherapy or targeted therapy where the patient continues it every few weeks (for life) - none of those studies go into the out of pocket costs and consequences of indefinite treatment! #gyncsm |
| Tobey @BRCAinfo @gyncsm Drug costs are shameful here. Patient care is ruled sometimes by insurance companies not doctors orders #gyncsm PS don’t get me started here! |
| Rick Boulay,MD @journeycancer The more recently approved deufs for Gyn cancers ar exorbitantly expensive as compared to older approves drugs. They may not me more effective. #GYNCSM https://t.co/dzWX2JRrjL |
| Rick Boulay,MD @journeycancer RT @womenofteal: T3 : T3 : @sloan_kettering has Abacus a drug pricing lab and tool https://t.co/7apInVlXK1 #gyncsm |
| Dee Sparacio @womenofteal @SuzieSiegel @BRCAinfo @ASCO Yes - oncologist do their best with the treatments they have. #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @IshwariaMD: @gyncsm I cringe every time I read a study about maintenance immunotherapy or targeted therapy where the patient continues it every few weeks (for life) - none of those studies go into the out of pocket costs and consequences of indefinite treatment! #gyncsm |
| Christina Lizaso @btrfly12 RT @IshwariaMD: @gyncsm I cringe every time I read a study about maintenance immunotherapy or targeted therapy where the patient continues it every few weeks (for life) - none of those studies go into the out of pocket costs and consequences of indefinite treatment! #gyncsm |
| Suzie Siegel @SuzieSiegel T4. I haven't had to worry too much about cost because I have Medicare & Medigap. I just wish Medigap providers in some states weren't allowed to gouge those of us under 65. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Last topic (T5:) coming up... #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/hhhOlPbxvf |
| Erica Bednar @EMBOSU T4: for patients who I work with at a local county hospital, access to PARP inhibitors after ovarian cancer recurrence & the identification of an inherited BRCA mutation, can be challenging primarily due to cost when they are un/underinsured 👎 #PrecisionMed4All #gyncsm https://t.co/l3a1PIiIZf |
 | gilberto lopes @GlopesMd RT @OncLive: BREAKING: BREAKING: @US_FDA Approves Bevacizumab as Frontline Ovarian Cancer Treatment After Surgery #ovcasm #gyncsm https://t.co/CxEmfK7qXa |
| GYN Cancer | #GYNCSM @gyncsm T5: What is being done to encourage including discussions around cost as part of the treatment plan? Are cost and financial toxicity discussions happening during office visits? Do payment models impact care? #gyncsm |
| Dee Sparacio @womenofteal Yes - parp inhibitors and FDA approved today for maintenance Avastin. #gyncsm https://t.co/oaYhl65Qx2 |
| Tobey @BRCAinfo @SuzieSiegel @womenofteal @ASCO I agree with that statement too. But not every doctor has the same qualifications. Some are better than others. Another example of quality & cost of care. #gyncsm |
| Rick Boulay,MD @journeycancer So much time wasted. And scientific data doesn’t at all sway the argument. Arrrrrrrrgh! #GYNCSM https://t.co/6TTKqzkL0n |
| Suzie Siegel @SuzieSiegel T4. For gyn #sarcoma patients, I think most get new treatments in clinical trials, but I'd love to hear more from them & the doctors who are treating them. #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/Moubq21D3J |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T5: T5: What is being done to encourage including discussions around cost as part of the treatment plan? Are cost and financial toxicity discussions happening during office visits? Do payment models impact care? #gyncsm |
 | Sandi Stanford @sandisues RT @FDAOncology: #FDAapproves bevacizumab in combination with chemotherapy for #ovariancancer, fallopian tube and primary peritoneal cancer https://t.co/b4FL0wzhto #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl T4 - I am waiting now for immunotherapy approval which my dr doesn’t think she’ll get approval. It’ll be bankruptcy for me I’m sure! #gyncsm https://t.co/MNowcYFXWZ |
 | Bhavana Pothuri @BPothuri RT @FDAOncology: FDA granted accelerated approval to pembrolizumab for advanced #cervicalcancer with disease progression during or after chemotherapy https://t.co/riBgIwfzf4 #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @gyncsm: T4: T4: How are rising drug, immunotherapy and targeted therapy prices impacting the evaluation of which treatments are of value? How have rising drug costs impacted you? #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: T4: T4: for patients who I work with at a local county hospital, access to PARP inhibitors after ovarian cancer recurrence & the identification of an inherited BRCA mutation, can be challenging primarily due to cost when they are un/underinsured 👎 #PrecisionMed4All #gyncsm https://t.co/l3a1PIiIZf |
| Christina Lizaso @btrfly12 RT @journeycancer: So much time wasted. And scientific data doesn’t at all sway the argument. Arrrrrrrrgh! #GYNCSM https://t.co/6TTKqzkL0n |
| Dee Sparacio @womenofteal #gyncsm https://t.co/3p3lmfyRy9 |
| Bhavana Pothuri @BPothuri RT @FDAOncology: #FDAapproves bevacizumab in combination with chemotherapy for #ovariancancer, fallopian tube and primary peritoneal cancer https://t.co/b4FL0wzhto #gyncsm |
| CancerDotNet @CancerDotNet @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: https://t.co/0LXKAUoBWz #gyncsm #financialtoxicity |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @womenofteal @SuzieSiegel @BRCAinfo @ASCO Yes! This highlights the glaring problem in oncology - none of us don’t know for a fact who will benefit from a particular treatment and to what degree and who won’t. So many investigators are working to identify the right patients for the right drugs at the right time. #gyncsm |
| Christina Lizaso @btrfly12 NCCN states that “value is often understood as benefits of treatment or quality of care weighed against the economic cost,” but admits that “it has been less clear which costs and benefits must be considered.” - see NCCN White Paper https://t.co/Z6YrUHVeCj #gyncsm |
 | David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @NJIvorygirl: T4 - I am waiting now for immunotherapy approval which my dr doesn’t think she’ll get approval. It’ll be bankruptcy for me I’m sure! #gyncsm https://t.co/MNowcYFXWZ |
| Rick Boulay,MD @journeycancer RT @IshwariaMD: @gyncsm I cringe every time I read a study about maintenance immunotherapy or targeted therapy where the patient continues it every few weeks (for life) - none of those studies go into the out of pocket costs and consequences of indefinite treatment! #gyncsm |
| Dee Sparacio @womenofteal @journeycancer @temkins Tough part of your job and takes time away from actually treating patients. #gyncsm |
| Dee Sparacio @womenofteal RT @SuzieSiegel: T4. For gyn #sarcoma patients, I think most get new treatments in clinical trials, but I'd love to hear more from them & the doctors who are treating them. #gyncsm |
| CancerDotNet @CancerDotNet @gyncsm #T5: Understanding the costs related to care may also help: https://t.co/UvGiI2cN93 #gyncsm |
| Suzie Siegel @SuzieSiegel @BRCAinfo @womenofteal @ASCO Yes, definitely, my original OB/GYN botched my care. So, she should have paid me. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @gyncsm T5. It's not routine to focus on cost, but it isn't uncommon to discuss at some point. That doesn't come up immediately. #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl Mine will be every 4 weeks for life. I can contribute more thoughts on this in a year! #gyncsm https://t.co/716Z2mpCuF |
| Rie Lopez, MPH (she/her) @RieOfLetters This is key. We know that not everyone responds the same to every treatment. However, for approval, new drugs do not have to show they improve results over current standard of care or perform better on a certain population. Until we have more data, we won't know. #gyncsm https://t.co/bwmWFAKawS |
| Matthew Katz, MD 🟦 @subatomicdoc RT @CancerDotNet: @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: https://t.co/0LXKAUoBWz #gyncsm #financialtoxicity |
| Suzie Siegel @SuzieSiegel RT @CancerDotNet: @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: https://t.co/0LXKAUoBWz #gyncsm #financialtoxicity |
| Lee ❤️🇺🇸 @NJIvorygirl RT @womenofteal: @ASCO report >>>> value in cancer care is achieved when “patients receive the right treatments, at the right time, for the right price.” #gyncsm |
| Dee Sparacio @womenofteal Some states have passed laws specifically saying the oral cancer treatments must be covered by insurance . I lost a friend waiting for the law to come into effect so she could get oral treatment. #gyncsm https://t.co/nILjULhpcA |
| Tobey @BRCAinfo @SuzieSiegel @womenofteal @ASCO Yes that was the “joke” I was making exactly! #gyncsm Niw you’ve got it! |
| Dee Sparacio @womenofteal RT @IshwariaMD: @womenofteal @SuzieSiegel @BRCAinfo @ASCO Yes! This highlights the glaring problem in oncology - none of us don’t know for a fact who will benefit from a particular treatment and to what degree and who won’t. So many investigators are working to identify the right patients for the right drugs at the right time. #gyncsm |
| Erica Bednar @EMBOSU @journeycancer @temkins in genetic counseling we actually (unfortunately) have a word for all the time we spend counseling patients on cost/insurance coverage/paperwork processes... Genesurance. Definitely cuts into our availability and limits working at the top of our scope #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: NCCN states that “value is often understood as benefits of treatment or quality of care weighed against the economic cost,” but admits that “it has been less clear which costs and benefits must be considered.” - see NCCN White Paper https://t.co/Z6YrUHVeCj #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/IG2R3YDEQz |
| Dee Sparacio @womenofteal RT @RieOfLetters: This is key. We know that not everyone responds the same to every treatment. However, for approval, new drugs do not have to show they improve results over current standard of care or perform better on a certain population. Until we have more data, we won't know. #gyncsm https://t.co/bwmWFAKawS |
| Christina Lizaso @btrfly12 Here's another article via #hcldr that helped me in thinking about value of care: https://t.co/w5Xl5PgKrH #gyncsm - it has some dandy graphics in it too |
| Matthew Katz, MD 🟦 @subatomicdoc @RieOfLetters Different disease but an oncologist was talking to me today about trial of taxane chemotherapy vs target drug - ?enzalutamide. Taxane cost $12,000+. "Targeted" >$200,000 #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl But that is the whole point of trials correct? Identity the pros and cons and share. #gyncsm Everyone should benefit. #trials #targetedtreatment #cancer https://t.co/zBOM3Pr0Uv |
| Lee ❤️🇺🇸 @NJIvorygirl RT @IshwariaMD: @womenofteal @SuzieSiegel @BRCAinfo @ASCO Yes! This highlights the glaring problem in oncology - none of us don’t know for a fact who will benefit from a particular treatment and to what degree and who won’t. So many investigators are working to identify the right patients for the right drugs at the right time. #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/mFo4Qxaiqh |
| Dee Sparacio @womenofteal RT @btrfly12: Here's another article via #hcldr that helped me in thinking about value of care: Here's another article via #hcldr that helped me in thinking about value of care: https://t.co/w5Xl5PgKrH #gyncsm - it has some dandy graphics in it too |
| Rick Boulay,MD @journeycancer As many of the newer drugs are oral, I often times hear from the pharmacist that the drug is too expensive and the patient can not afford it. #GYNCSM https://t.co/q23ksVihsD |
| Karen Galler @Karenrosegt RT @SuzieSiegel: Our definitions of value may change over time. Talked today to a uterine #leiomyosarcoma patient. Her insurance & care may have seemed like good value for years, but now her insurance won't cover a visit to a #sarcoma specialist. #gyncsm |
| Karen Galler @Karenrosegt RT @SuzieSiegel: @temkins I wish more people had insurance that would allow for a second opinion. #gyncsm #sarcoma |
| Rie Lopez, MPH (she/her) @RieOfLetters This is devastating and shows how badly things need to change within the #healthcare system. We should all have the ability to focus on our treatment and healing process, not fears of bankrupting or financially destroying our family. #gyncsm https://t.co/trq491dW2D |
| GYN Cancer | #GYNCSM @gyncsm Greatly appreciate everyone diving in on this complicated but important topic. Time to start sharing closing thoughts. You can start your tweet w/ “TIL:” standing for Today I Learned... #gyncsm |
| Rick Boulay,MD @journeycancer RT @btrfly12: NCCN states that “value is often understood as benefits of treatment or quality of care weighed against the economic cost,” but admits that “it has been less clear which costs and benefits must be considered.” - see NCCN White Paper https://t.co/Z6YrUHVeCj #gyncsm |
| Dee Sparacio @womenofteal In my experience outside cancer care physicians don’t know the cost of drug they are prescribing or whether it is in my covered formulary. And we haven't even talked about costs of scans (CT/ PET/ MRI) which is so much a part of our care. #gyncsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @gyncsm T5: $ discussions are so tough in onc bc we’re talking about cancer, a life-altering illness. How do you decide when a drug is not worth it? What I CAN do at this stage is make it ok to talk about co-pays & expenses in clinic - I ask my pts about their #financialtoxicity. #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/55AKFan3Ga |
| Christina Lizaso @btrfly12 RT @EMBOSU: @journeycancer @temkins in genetic counseling we actually (unfortunately) have a word for all the time we spend counseling patients on cost/insurance coverage/paperwork processes... Genesurance. Definitely cuts into our availability and limits working at the top of our scope #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: Some states have passed laws specifically saying the oral cancer treatments must be covered by insurance . I lost a friend waiting for the law to come into effect so she could get oral treatment. #gyncsm https://t.co/nILjULhpcA |
| Lee ❤️🇺🇸 @NJIvorygirl #T5 - it allowed my parents to ask questions and cry without upsetting my sister. After she had rested and when she was ready we addressed everything as a family. #gyncsm https://t.co/gxg9vjZ1g4 |
| Tobey @BRCAinfo RT @RieOfLetters: This is devastating and shows how badly things need to change within the #healthcare system. We should all have the ability to focus on our treatment and healing process, not fears of bankrupting or financially destroying our family. #gyncsm https://t.co/trq491dW2D |
| Lee ❤️🇺🇸 @NJIvorygirl RT @CancerDotNet: @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: https://t.co/0LXKAUoBWz #gyncsm #financialtoxicity |
| Dee Sparacio @womenofteal And patients appreciate having that information so they can make the best decision they can. #gyncsm https://t.co/FChlOgopTs |
| Christina Lizaso @btrfly12 RT @womenofteal: In my experience outside cancer care physicians don’t know the cost of drug they are prescribing or whether it is in my covered formulary. And we haven't even talked about costs of scans (CT/ PET/ MRI) which is so much a part of our care. #gyncsm |
| Suzie Siegel @SuzieSiegel TIL more about the definition of QALY, and I enjoyed the different viewpoints. #gyncsm |
| Christina Lizaso @btrfly12 @womenofteal I get to spend my whole deductible tomorrow for my annual MRI - grateful for screening but definitely feeling it #gyncsm |
| Rick Boulay,MD @journeycancer Only in the US. This is not the case in other countries. #GYNCSM https://t.co/aYQtuC1uQJ |
| Lee ❤️🇺🇸 @NJIvorygirl T4 - Interesting. I will have to fight my ins co to go out of State (NJ) even for another opinion - #JohnHopkins @DanaFarber @MayoClinic #gyncsm https://t.co/PyWQXtVgxV |
| Lee ❤️🇺🇸 @NJIvorygirl RT @SuzieSiegel: T4. I haven't had to worry too much about cost because I have Medicare & Medigap. I just wish Medigap providers in some states weren't allowed to gouge those of us under 65. #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @SuzieSiegel: T4. For gyn #sarcoma patients, I think most get new treatments in clinical trials, but I'd love to hear more from them & the doctors who are treating them. #gyncsm |
| Rick Boulay,MD @journeycancer RT @btrfly12: Here's another article via #hcldr that helped me in thinking about value of care: Here's another article via #hcldr that helped me in thinking about value of care: https://t.co/w5Xl5PgKrH #gyncsm - it has some dandy graphics in it too |
| Inspire @InspireIsHealth RT @btrfly12: NCCN states that “value is often understood as benefits of treatment or quality of care weighed against the economic cost,” but admits that “it has been less clear which costs and benefits must be considered.” - see NCCN White Paper https://t.co/Z6YrUHVeCj #gyncsm |
 | Sahba Ferdowsi DO (conciergedoc) @DrFerdowsi RT @OncLive: BREAKING: BREAKING: @US_FDA Approves Bevacizumab as Frontline Ovarian Cancer Treatment After Surgery #ovcasm #gyncsm https://t.co/CxEmfK7qXa |
| Rick Boulay,MD @journeycancer RT @subatomicdoc: @RieOfLetters Different disease but an oncologist was talking to me today about trial of taxane chemotherapy vs target drug - ?enzalutamide. Taxane cost $12,000+. "Targeted" >$200,000 #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @btrfly12: T3: More related reading - Value: T3: More related reading - Value: The Next Frontier in Cancer Care https://t.co/p2EsyqxS4T #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @EMBOSU: T3: T3: just today I read an interesting review of QALY as a measure of healthcare outcome and cost...and the controversy over its use. recently published: https://t.co/QmTybMpcVy #gyncsm https://t.co/bMibOWSrlP |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone for the wonderful discussion. Next #gyncsm chat is Wed July 11, 2018 on Hereditary versus Somatic Mutations. #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @IshwariaMD: Happening now - #gyncsm chat. A great lineup of questions on the #value of care among the gyn #cancer populations. Article: The "Value" of value in gynecologic oncology practice in the United States” https://t.co/XyiKRYhWju https://t.co/NihLHdvKk3 |
| Tobey @BRCAinfo @btrfly12 @womenofteal Good luck 👍 #gyncsm |
| Suzie Siegel @SuzieSiegel @temkins @EMBOSU @journeycancer @GeneticCouns And don't forget to test your uterine #leiomyosarcoma patients, too. Some have #BRCA mutations as well. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks to everyone for the wonderful discussion. Next #gyncsm chat is Wed July 11, 2018 on Hereditary versus Somatic Mutations. #gyncsm |
| Christina Lizaso @btrfly12 RT @IshwariaMD: @gyncsm T5: @gyncsm T5: $ discussions are so tough in onc bc we’re talking about cancer, a life-altering illness. How do you decide when a drug is not worth it? What I CAN do at this stage is make it ok to talk about co-pays & expenses in clinic - I ask my pts about their #financialtoxicity. #gyncsm |
| Tobey @BRCAinfo RT @gyncsm: Thanks to everyone for the wonderful discussion. Next #gyncsm chat is Wed July 11, 2018 on Hereditary versus Somatic Mutations. #gyncsm |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @DrMarkham @journeycancer @DrBeckerSchutte |
| Matthew Katz, MD 🟦 @subatomicdoc @gyncsm Thanks for a great chat, I'm glad I could make it for the second half. Have a great evening everyone! #gyncsm |
| Rick Boulay,MD @journeycancer RT @womenofteal: In my experience outside cancer care physicians don’t know the cost of drug they are prescribing or whether it is in my covered formulary. And we haven't even talked about costs of scans (CT/ PET/ MRI) which is so much a part of our care. #gyncsm |
| Dee Sparacio @womenofteal TIL that it is not easy to define value of care but patients need to be in the discussion. #gyncsm |
| Erica Bednar @EMBOSU @temkins @journeycancer @GeneticCouns Best of luck! It's so frustrating to have insurance-induced disparities in access to medically necessary genetic counseling/genetic testing. Hopefully we'll see improvement in the near future! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
 | Stacy Loeb, MD @LoebStacy @CancerDotNet @subatomicdoc @gyncsm We recently published a paper showing a substantial amount of crowdfunding going on in #breastcancer & #prostatecancer mostly to pay for treatment costs- likely occurring in other cancers as well #gyncsm https://t.co/PWQU3Gqxai |
 | Sarah Cassidy @CassidyFish2 Honesty and transparency goes a long way! #gyncsm https://t.co/aCSy35en1b |
| GYN Cancer | #GYNCSM @gyncsm Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm |
| Tobey @BRCAinfo TY #gyncsm for all you do & good night 💤 |
| Suzie Siegel @SuzieSiegel @btrfly12 @womenofteal Also, there are probably a number of gyn patients like me who have to pay for #ostomy supplies. #gyncsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @womenofteal @btrfly12 @ShannonWestin @DrMarkham @journeycancer @DrBeckerSchutte Thanks for hosting and asking these important questions. I saved several of the tweets w articles to read through later tonight. Good night, #gyncsm-verse! |
| GYN Cancer | #GYNCSM @gyncsm Thanks @temkins for all your work in the area of GYN Cancer Value of Care and for sharing with us on #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters T5: We need a lot more of these discussions. Talking about the financial situation of your patient is important. It can help HCPs understand why patients may have different goals for treatment or why they might be "non-compliant" #gyncsm https://t.co/LyygRakHDm |
| Erica Bednar @EMBOSU Thanks for the great chat, everyone! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
 | Cancer Hope Network @CancerHopeNet RT @IshwariaMD: @gyncsm T1a. There’s a slow culture shift in cancer where it’s no longer just about “will drug X make me live longer” but “will drug X make me live better.” And how you the patient define “better” is your very own definition of “value” - how’s that for #PrecisionMedicine! #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl @CancerDotNet @gyncsm #T5 - My sister gave us permission to handle her medical needs so that she could ‘be the patient’ without being a secretary/nurse/etc. We were ‘binder pros’ by the time it was my husband’s turn and then mine in 2012 #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @gyncsm: Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm |
| Christina Lizaso @btrfly12 RT @SuzieSiegel: @btrfly12 @womenofteal Also, there are probably a number of gyn patients like me who have to pay for #ostomy supplies. #gyncsm |
| Enlightening Results 💡 @GraceCordovano RT @RieOfLetters: This is devastating and shows how badly things need to change within the #healthcare system. We should all have the ability to focus on our treatment and healing process, not fears of bankrupting or financially destroying our family. #gyncsm https://t.co/trq491dW2D |
| Christina Lizaso @btrfly12 RT @LoebStacy: @CancerDotNet @subatomicdoc @gyncsm We recently published a paper showing a substantial amount of crowdfunding going on in #breastcancer & #prostatecancer mostly to pay for treatment costs- likely occurring in other cancers as well #gyncsm https://t.co/PWQU3Gqxai |
| Rick Boulay,MD @journeycancer TIL. Value is rarely considered in treatment of Cancer. I expect it to become more commonly used in prescription practices in the future. #GYNCSM https://t.co/RYYRJ5UiBF |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @LoebStacy: @CancerDotNet @subatomicdoc @gyncsm We recently published a paper showing a substantial amount of crowdfunding going on in #breastcancer & #prostatecancer mostly to pay for treatment costs- likely occurring in other cancers as well #gyncsm https://t.co/PWQU3Gqxai |
| Inspire @InspireIsHealth RT @gyncsm: Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| Matthew Katz, MD 🟦 @subatomicdoc RT @LoebStacy: @CancerDotNet @subatomicdoc @gyncsm We recently published a paper showing a substantial amount of crowdfunding going on in #breastcancer & #prostatecancer mostly to pay for treatment costs- likely occurring in other cancers as well #gyncsm https://t.co/PWQU3Gqxai |
| Christina Lizaso @btrfly12 RT @womenofteal: TIL that it is not easy to define value of care but patients need to be in the discussion. #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/zIn3V0ASMJ |
| Lee ❤️🇺🇸 @NJIvorygirl Look forward to reading this! #gyncsm #prostatecancer https://t.co/XppsJxOc5A |
| Lee ❤️🇺🇸 @NJIvorygirl RT @LoebStacy: @CancerDotNet @subatomicdoc @gyncsm We recently published a paper showing a substantial amount of crowdfunding going on in #breastcancer & #prostatecancer mostly to pay for treatment costs- likely occurring in other cancers as well #gyncsm https://t.co/PWQU3Gqxai |
| Christina Lizaso @btrfly12 RT @gyncsm: Thanks to everyone for the wonderful discussion. Next #gyncsm chat is Wed July 11, 2018 on Hereditary versus Somatic Mutations. #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @gyncsm: T5: T5: What is being done to encourage including discussions around cost as part of the treatment plan? Are cost and financial toxicity discussions happening during office visits? Do payment models impact care? #gyncsm |
| Suzie Siegel @SuzieSiegel @LoebStacy @CancerDotNet @subatomicdoc @gyncsm I see that in #sarcoma, too. People are trying to raise amounts that are the same or more than the annual budgets of sarcoma nonprofits. #gyncsm |
| Christina Lizaso @btrfly12 RT @NJIvorygirl: @CancerDotNet @gyncsm #T5 - My sister gave us permission to handle her medical needs so that she could ‘be the patient’ without being a secretary/nurse/etc. We were ‘binder pros’ by the time it was my husband’s turn and then mine in 2012 #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @journeycancer: Only in the US. This is not the case in other countries. #GYNCSM https://t.co/aYQtuC1uQJ |
| Rick Boulay,MD @journeycancer RT @gyncsm: Thanks to everyone for the wonderful discussion. Next #gyncsm chat is Wed July 11, 2018 on Hereditary versus Somatic Mutations. #gyncsm |
| Dee Sparacio @womenofteal Thank you so much @temkins for joining us tonight and sharing your expertise with our community. #gyncsm |
| Christina Lizaso @btrfly12 @EMBOSU Hope you are available next month for genetics/genomics/etc. topic :) #gyncsm @womenofteal |
| Lee ❤️🇺🇸 @NJIvorygirl @temkins @subatomicdoc Hard to hit the ‘like’ button on this. It is so sad because it is true! #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/iVYV5tVetm |
| Christina Lizaso @btrfly12 RT @RieOfLetters: T5: T5: We need a lot more of these discussions. Talking about the financial situation of your patient is important. It can help HCPs understand why patients may have different goals for treatment or why they might be "non-compliant" #gyncsm https://t.co/LyygRakHDm |
| Christina Lizaso @btrfly12 RT @SuzieSiegel: @LoebStacy @CancerDotNet @subatomicdoc @gyncsm I see that in #sarcoma, too. People are trying to raise amounts that are the same or more than the annual budgets of sarcoma nonprofits. #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @womenofteal: T3 : T3 : @sloan_kettering has Abacus a drug pricing lab and tool https://t.co/7apInVlXK1 #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @SuzieSiegel: Our definitions of value may change over time. Talked today to a uterine #leiomyosarcoma patient. Her insurance & care may have seemed like good value for years, but now her insurance won't cover a visit to a #sarcoma specialist. #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @IshwariaMD: @gyncsm T1b: @gyncsm T1b: “value of care” is a very personal definition - Is your treatment or survivorship plan in line w what’s important to you in terms of cancer outcomes, day to day life, etc? The tx plans can’t be one size fits all (or most!). #gyncsm |
| Rie Lopez, MPH (she/her) @RieOfLetters @btrfly12 @womenofteal Sending you warm thoughts of a clean MRI! #gyncsm |
| Lee ❤️🇺🇸 @NJIvorygirl RT @womenofteal: T1a This year President’s Panel report- discussing cancer drug cost and value https://t.co/ChuTQtWLIf #gyncsm https://t.co/o1srtCZ4YF |
| Lee ❤️🇺🇸 @NJIvorygirl RT @subatomicdoc: Good evening! Sorry to join late everyone, I hope you're well. Matt Katz in radiation oncology here - I'll be lurking trying to catch up #gyncsm |
 | Lee @FlaIvoryGirl RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/lekD11DNcA |
| Lee @FlaIvoryGirl RT @womenofteal: Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat . Greatly appreciated. |
| Lee @FlaIvoryGirl RT @gyncsm: Great to have you all here. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
| Lee @FlaIvoryGirl RT @NJIvorygirl: T1a - The value of care is important from the moment the #CWord is out on the table. It encompasses every step in the process. #lynchsyndrome #gyncsm https://t.co/4xW6qJFPJw |
| Lee @FlaIvoryGirl RT @gyncsm: T1a: T1a: There been a lot of discussion in recent years about "value of care". Why is it important? #gyncsm |
| Lee @FlaIvoryGirl RT @NJIvorygirl: T1b - By trying to lift a burden. I keep a binder of everything. Makes it easier for the patient, drs & family (my sister’s cancer or mine) It helps so you can refer to office visits, bloodwork, tests results, feelings, what worked or didn’t. #gyncsm https://t.co/y8b6p0PDOZ |
| Lee @FlaIvoryGirl RT @gyncsm: T1b: T1b: How do YOU define the "value of care" you give and/or receive as a patient, loved one, healthcare professional, etc? #gyncsm |
| Lee @FlaIvoryGirl RT @gyncsm: #gyncsm RT @journeycancer Health care value, or the improvement due to treatment per cost of treatment is important as health care costs are 20% of GDP and may bankrupt us. |
| Lee @FlaIvoryGirl RT @gyncsm: Topic 2 (T2:) coming up... https://t.co/lekD11DNcA #gyncsm |
| Lee @FlaIvoryGirl RT @gyncsm: T2: T2: In addition to price, what other information would you need in order to make a judgment on the value of the care you receive (procedures/chemo/visits/etc.)? #gyncsm |
| Lee @FlaIvoryGirl RT @gyncsm: T3: T3: What are Quality-adjusted life years (QALY)? How do we measure outcomes? What elements are large medical organizations (incl. ASCO and SGO) including in their recommendations on value of care? #gyncsm |
| Lee @FlaIvoryGirl RT @btrfly12: #gyncsm - https://t.co/R9V9gWoj6H |
| Rick Boulay,MD @journeycancer Thanks for a great talk everyone! Good night! #gyncsm |
| Lee @FlaIvoryGirl RT @NJIvorygirl: T4 - I am waiting now for immunotherapy approval which my dr doesn’t think she’ll get approval. It’ll be bankruptcy for me I’m sure! #gyncsm https://t.co/MNowcYFXWZ |
| Lee @FlaIvoryGirl RT @gyncsm: T4: T4: How are rising drug, immunotherapy and targeted therapy prices impacting the evaluation of which treatments are of value? How have rising drug costs impacted you? #gyncsm |
| Lee @FlaIvoryGirl RT @NJIvorygirl: Mine will be every 4 weeks for life. I can contribute more thoughts on this in a year! #gyncsm https://t.co/716Z2mpCuF |
| Lee @FlaIvoryGirl RT @womenofteal: @ASCO report >>>> value in cancer care is achieved when “patients receive the right treatments, at the right time, for the right price.” #gyncsm |
| Lee @FlaIvoryGirl RT @NJIvorygirl: But that is the whole point of trials correct? Identity the pros and cons and share. #gyncsm Everyone should benefit. #trials #targetedtreatment #cancer https://t.co/zBOM3Pr0Uv |
| Lee @FlaIvoryGirl RT @IshwariaMD: @womenofteal @SuzieSiegel @BRCAinfo @ASCO Yes! This highlights the glaring problem in oncology - none of us don’t know for a fact who will benefit from a particular treatment and to what degree and who won’t. So many investigators are working to identify the right patients for the right drugs at the right time. #gyncsm |
| Lee @FlaIvoryGirl RT @NJIvorygirl: #T5 - it allowed my parents to ask questions and cry without upsetting my sister. After she had rested and when she was ready we addressed everything as a family. #gyncsm https://t.co/gxg9vjZ1g4 |
| Lee @FlaIvoryGirl RT @CancerDotNet: @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: https://t.co/0LXKAUoBWz #gyncsm #financialtoxicity |
| Lee @FlaIvoryGirl RT @NJIvorygirl: T4 - Interesting. I will have to fight my ins co to go out of State (NJ) even for another opinion - #JohnHopkins @DanaFarber @MayoClinic #gyncsm https://t.co/PyWQXtVgxV |
| Lee @FlaIvoryGirl RT @SuzieSiegel: T4. I haven't had to worry too much about cost because I have Medicare & Medigap. I just wish Medigap providers in some states weren't allowed to gouge those of us under 65. #gyncsm |
| Lee @FlaIvoryGirl RT @SuzieSiegel: T4. For gyn #sarcoma patients, I think most get new treatments in clinical trials, but I'd love to hear more from them & the doctors who are treating them. #gyncsm |
| Lee @FlaIvoryGirl RT @btrfly12: T3: More related reading - Value: T3: More related reading - Value: The Next Frontier in Cancer Care https://t.co/p2EsyqxS4T #gyncsm |
| Lee @FlaIvoryGirl RT @EMBOSU: T3: T3: just today I read an interesting review of QALY as a measure of healthcare outcome and cost...and the controversy over its use. recently published: https://t.co/QmTybMpcVy #gyncsm https://t.co/bMibOWSrlP |
| Lee @FlaIvoryGirl RT @IshwariaMD: Happening now - #gyncsm chat. A great lineup of questions on the #value of care among the gyn #cancer populations. Article: The "Value" of value in gynecologic oncology practice in the United States” https://t.co/XyiKRYhWju https://t.co/NihLHdvKk3 |
| Lee @FlaIvoryGirl RT @NJIvorygirl: Look forward to reading this! #gyncsm #prostatecancer https://t.co/XppsJxOc5A |
| Lee @FlaIvoryGirl RT @LoebStacy: @CancerDotNet @subatomicdoc @gyncsm We recently published a paper showing a substantial amount of crowdfunding going on in #breastcancer & #prostatecancer mostly to pay for treatment costs- likely occurring in other cancers as well #gyncsm https://t.co/PWQU3Gqxai |
| Lee @FlaIvoryGirl RT @gyncsm: T5: T5: What is being done to encourage including discussions around cost as part of the treatment plan? Are cost and financial toxicity discussions happening during office visits? Do payment models impact care? #gyncsm |
| Lee @FlaIvoryGirl RT @womenofteal: T3 : T3 : @sloan_kettering has Abacus a drug pricing lab and tool https://t.co/7apInVlXK1 #gyncsm |
| Lee @FlaIvoryGirl RT @SuzieSiegel: Our definitions of value may change over time. Talked today to a uterine #leiomyosarcoma patient. Her insurance & care may have seemed like good value for years, but now her insurance won't cover a visit to a #sarcoma specialist. #gyncsm |
| Lee @FlaIvoryGirl RT @IshwariaMD: @gyncsm T1b: @gyncsm T1b: “value of care” is a very personal definition - Is your treatment or survivorship plan in line w what’s important to you in terms of cancer outcomes, day to day life, etc? The tx plans can’t be one size fits all (or most!). #gyncsm |
| Lee @FlaIvoryGirl RT @womenofteal: T1a This year President’s Panel report- discussing cancer drug cost and value https://t.co/ChuTQtWLIf #gyncsm https://t.co/o1srtCZ4YF |
| Lee @FlaIvoryGirl Good evening! #Gyncsm https://t.co/roYVdkz6v8 |
| Rie Lopez, MPH (she/her) @RieOfLetters Things that leave you wanting to scream into the void. What a tremendous difference in price! #gyncsm https://t.co/cnnuAOBi1i |
 | Keith Shanahan 😎 @CellSpotter RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/lekD11DNcA |
| Keith Shanahan 😎 @CellSpotter RT @womenofteal: Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat . Greatly appreciated. |
| Keith Shanahan 😎 @CellSpotter RT @gyncsm: Great to have you all here. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @NJIvorygirl: T1a - The value of care is important from the moment the #CWord is out on the table. It encompasses every step in the process. #lynchsyndrome #gyncsm https://t.co/4xW6qJFPJw |
| Keith Shanahan 😎 @CellSpotter RT @gyncsm: T1a: T1a: There been a lot of discussion in recent years about "value of care". Why is it important? #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @NJIvorygirl: T1b - By trying to lift a burden. I keep a binder of everything. Makes it easier for the patient, drs & family (my sister’s cancer or mine) It helps so you can refer to office visits, bloodwork, tests results, feelings, what worked or didn’t. #gyncsm https://t.co/y8b6p0PDOZ |
| Keith Shanahan 😎 @CellSpotter RT @gyncsm: T1b: T1b: How do YOU define the "value of care" you give and/or receive as a patient, loved one, healthcare professional, etc? #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @gyncsm: #gyncsm RT @journeycancer Health care value, or the improvement due to treatment per cost of treatment is important as health care costs are 20% of GDP and may bankrupt us. |
| Keith Shanahan 😎 @CellSpotter RT @gyncsm: Topic 2 (T2:) coming up... https://t.co/lekD11DNcA #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @gyncsm: T2: T2: In addition to price, what other information would you need in order to make a judgment on the value of the care you receive (procedures/chemo/visits/etc.)? #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @btrfly12: #gyncsm - https://t.co/R9V9gWoj6H |
| Keith Shanahan 😎 @CellSpotter RT @NJIvorygirl: T4 - I am waiting now for immunotherapy approval which my dr doesn’t think she’ll get approval. It’ll be bankruptcy for me I’m sure! #gyncsm https://t.co/MNowcYFXWZ |
| Keith Shanahan 😎 @CellSpotter RT @gyncsm: T4: T4: How are rising drug, immunotherapy and targeted therapy prices impacting the evaluation of which treatments are of value? How have rising drug costs impacted you? #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @NJIvorygirl: Mine will be every 4 weeks for life. I can contribute more thoughts on this in a year! #gyncsm https://t.co/716Z2mpCuF |
| Keith Shanahan 😎 @CellSpotter RT @womenofteal: @ASCO report >>>> value in cancer care is achieved when “patients receive the right treatments, at the right time, for the right price.” #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @NJIvorygirl: But that is the whole point of trials correct? Identity the pros and cons and share. #gyncsm Everyone should benefit. #trials #targetedtreatment #cancer https://t.co/zBOM3Pr0Uv |
| Keith Shanahan 😎 @CellSpotter RT @IshwariaMD: @womenofteal @SuzieSiegel @BRCAinfo @ASCO Yes! This highlights the glaring problem in oncology - none of us don’t know for a fact who will benefit from a particular treatment and to what degree and who won’t. So many investigators are working to identify the right patients for the right drugs at the right time. #gyncsm |
| Keith Shanahan 😎 @CellSpotter Every minute just being with loved one is so very important! #gyncsm https://t.co/Y5RbRiNWGc |
| Keith Shanahan 😎 @CellSpotter RT @NJIvorygirl: #T5 - it allowed my parents to ask questions and cry without upsetting my sister. After she had rested and when she was ready we addressed everything as a family. #gyncsm https://t.co/gxg9vjZ1g4 |
| Keith Shanahan 😎 @CellSpotter RT @CancerDotNet: @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: @gyncsm #T5: Creating a safe space with patients, and honest conversation is important: https://t.co/0LXKAUoBWz #gyncsm #financialtoxicity |
| Keith Shanahan 😎 @CellSpotter RT @NJIvorygirl: T4 - Interesting. I will have to fight my ins co to go out of State (NJ) even for another opinion - #JohnHopkins @DanaFarber @MayoClinic #gyncsm https://t.co/PyWQXtVgxV |
| Keith Shanahan 😎 @CellSpotter RT @SuzieSiegel: T4. I haven't had to worry too much about cost because I have Medicare & Medigap. I just wish Medigap providers in some states weren't allowed to gouge those of us under 65. #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @SuzieSiegel: T4. For gyn #sarcoma patients, I think most get new treatments in clinical trials, but I'd love to hear more from them & the doctors who are treating them. #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @btrfly12: T3: More related reading - Value: T3: More related reading - Value: The Next Frontier in Cancer Care https://t.co/p2EsyqxS4T #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @EMBOSU: T3: T3: just today I read an interesting review of QALY as a measure of healthcare outcome and cost...and the controversy over its use. recently published: https://t.co/QmTybMpcVy #gyncsm https://t.co/bMibOWSrlP |
| Keith Shanahan 😎 @CellSpotter RT @IshwariaMD: Happening now - #gyncsm chat. A great lineup of questions on the #value of care among the gyn #cancer populations. Article: The "Value" of value in gynecologic oncology practice in the United States” https://t.co/XyiKRYhWju https://t.co/NihLHdvKk3 |
| Keith Shanahan 😎 @CellSpotter RT @NJIvorygirl: Look forward to reading this! #gyncsm #prostatecancer https://t.co/XppsJxOc5A |
| Keith Shanahan 😎 @CellSpotter RT @LoebStacy: @CancerDotNet @subatomicdoc @gyncsm We recently published a paper showing a substantial amount of crowdfunding going on in #breastcancer & #prostatecancer mostly to pay for treatment costs- likely occurring in other cancers as well #gyncsm https://t.co/PWQU3Gqxai |
| Keith Shanahan 😎 @CellSpotter RT @gyncsm: T5: T5: What is being done to encourage including discussions around cost as part of the treatment plan? Are cost and financial toxicity discussions happening during office visits? Do payment models impact care? #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @womenofteal: T3 : T3 : @sloan_kettering has Abacus a drug pricing lab and tool https://t.co/7apInVlXK1 #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @SuzieSiegel: Our definitions of value may change over time. Talked today to a uterine #leiomyosarcoma patient. Her insurance & care may have seemed like good value for years, but now her insurance won't cover a visit to a #sarcoma specialist. #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @IshwariaMD: @gyncsm T1b: @gyncsm T1b: “value of care” is a very personal definition - Is your treatment or survivorship plan in line w what’s important to you in terms of cancer outcomes, day to day life, etc? The tx plans can’t be one size fits all (or most!). #gyncsm |
| Keith Shanahan 😎 @CellSpotter RT @womenofteal: T1a This year President’s Panel report- discussing cancer drug cost and value https://t.co/ChuTQtWLIf #gyncsm https://t.co/o1srtCZ4YF |
| Keith Shanahan 😎 @CellSpotter RT @subatomicdoc: Good evening! Sorry to join late everyone, I hope you're well. Matt Katz in radiation oncology here - I'll be lurking trying to catch up #gyncsm |
 | TD Bessler @TDBessler RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/lekD11DNcA |
| TD Bessler @TDBessler RT @womenofteal: Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat . Greatly appreciated. |
| TD Bessler @TDBessler RT @gyncsm: Great to have you all here. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
| TD Bessler @TDBessler RT @NJIvorygirl: T1a - The value of care is important from the moment the #CWord is out on the table. It encompasses every step in the process. #lynchsyndrome #gyncsm https://t.co/4xW6qJFPJw |
 | Tatiana Prowell, MD @tmprowell RT @FDAOncology: #FDAapproves bevacizumab in combination with chemotherapy for #ovariancancer, fallopian tube and primary peritoneal cancer https://t.co/b4FL0wzhto #gyncsm |
 | Wafik S. El-Deiry, MD, PhD, FACP @weldeiry The latest The Cancer Plus Daily! https://t.co/Rq6ISD0oF8 Thanks to @BinXu16 @sciencecomedian @dr_asr #gyncsm #cancer |
#GynCSM content from Twitter.