#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | NCI Cancer Stats @NCICancerStats Uterine #cancer is the 9th most common cancer in the United States, representing 3.6% of all new cancer cases. Learn more here: https://t.co/cdRhE4DJRd #GynCSM https://t.co/YzqgObHxHM |
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Our health care moderators are @ShannonWestin @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @NCICancerStats: Uterine #cancer is the 9th most common cancer in the United States, representing 3.6% of all new cancer cases. Learn more here: https://t.co/cdRhE4DJRd #GynCSM https://t.co/YzqgObHxHM |
 | Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm A special thank you to @DrMarkham for her almost 5 years as one of our founding #gyncsm health care moderators. We wish her well as she begins her new position and will miss her. :) |
 | Dee Sparacio @womenofteal #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We start out with some intro time - Please take a moment to introduce yourself. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: A special thank you to @DrMarkham for her almost 5 years as one of our founding #gyncsm health care moderators. We wish her well as she begins her new position and will miss her. :) |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @gyncsm We will miss you @DrMarkham!!! Don't be a stranger :) #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello all. I'm Shereese, tweeting from Maryland. A special shoutout to @womenofteal #gyncsm https://t.co/6T3krqUg0D |
 | Suzie Siegel @SuzieSiegel I'm a survivor of vaginal #leiomyosarcoma. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin Hello! I am a gynecologic oncologist at @mdandersonnews - excited to be here!! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. |
 | Beth Fand Incollingo @FandIncollingo Beth from CURE magazine here! #gyncsm |
| Beth Fand Incollingo @FandIncollingo Beth from CURE magazine here! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Please continue intro's & welcomes - we'll start in w/ the "ground rules" :) #gyncsm |
| Dee Sparacio @womenofteal Dee here! Dx #ovca 2005, OC research advocate, author blogger & co-moderator #gyncsm |
| Dee Sparacio @womenofteal Hi @ShereesePubHlth and @SuzieSiegel glad you are with us. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUuJIrY |
 | Sangeeta (Helpsy) @sanHelpsy #GYNCSM Hi everyone! I'm a cancer nurse and a caregiver for loved one with cancer. I'm also an integrative medicine practitioner and researcher. Looking forward to today's discussion. |
| Dee Sparacio @womenofteal @FandIncollingo Hi @FandIncollingo so glad you can join us. CURE shares excellent information on what is OK. #gyncsm |
 | Ramiro J. Tupayachi @ratupayachi RT @TargetedOnc: "Unfortunately, all patients on PARP inhibitors eventually develop resistance." https://t.co/YfIBBxRKCE #PARP #OvarianCancer #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @FandIncollingo Hi Beth! Great to have you here! #gyncsm |
| Dee Sparacio @womenofteal Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #GynCSM |
| Christina Lizaso @btrfly12 RT @sanHelpsy: #GYNCSM Hi everyone! I'm a cancer nurse and a caregiver for loved one with cancer. I'm also an integrative medicine practitioner and researcher. Looking forward to today's discussion. |
 | Ann Wax @annwax @gyncsm Hello, I am an oncology nurse, motivational speaker and educator for wellness. Also an author of Op-ed on cancer. #gyncsm #health |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience. |
| Sangeeta (Helpsy) @sanHelpsy @ShannonWestin @MDAndersonNews Welcome Shannon! Thank you for joining! I'm sure you will have great input and thoughts. #gyncsm |
| Dee Sparacio @womenofteal @sanHelpsy We are so glad you are joining us tonight! #gyncsm |
| Dee Sparacio @womenofteal Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal info #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @ShereesePubHlth @womenofteal Yes a special shoutout to @womenofteal ! Hi ! Thank you for joining us! #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: A special thank you to @DrMarkham for her almost 5 years as one of our founding #gyncsm health care moderators. We wish her well as she begins her new position and will miss her. :) |
| Dee Sparacio @womenofteal #gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @gyncsm @womenofteal @btrfly12 Awesome! Thank you for co-moderating! #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal info #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Lovely group gathering. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
| Dee Sparacio @womenofteal @annwax @gyncsm Welcome back Ann. Thanks for joining us. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: Lovely group gathering. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
| Dee Sparacio @womenofteal @ShereesePubHlth Hellooooo there Shereese! #gyncsm |
| Dee Sparacio @womenofteal Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @womenofteal: Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #GynCSM |
| GYN Cancer | #GYNCSM @gyncsm Tonight we will discuss “What is OK during treatment?”. We will touch on things like exercise, vitamins, supplements... #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: Tonight we will discuss “What is OK during treatment?”. We will touch on things like exercise, vitamins, supplements... #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @annwax @gyncsm yeah!! That's awesome! Fellow Onc nurse and wellness expert. Welcome Ann! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm You can find an overview of tonight’s #gyncsm topics here: https://t.co/pr1HcQQvYp |
| Sangeeta (Helpsy) @sanHelpsy @womenofteal Thank you! I'm honored! #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: Lovely group gathering. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
| Ann Wax @annwax @sanHelpsy another oncology nurse on the #gyncsm. Hello #health #wellness |
| Dee Sparacio @womenofteal RT @gyncsm: Tonight we will discuss “What is OK during treatment?”. We will touch on things like exercise, vitamins, supplements... #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: You can find an overview of tonight’s #gyncsm topics here: You can find an overview of tonight’s #gyncsm topics here: https://t.co/pr1HcQQvYp |
 | Akanksha Nayak @anayak2111 RT @sanHelpsy: Come join the #gyncsm chat today at 6 PM PT! #bcsm #btsm |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: #GYNCSM Hi everyone! I'm a cancer nurse and a caregiver for loved one with cancer. I'm also an integrative medicine practitioner and researcher. Looking forward to today's discussion. |
| Ann Wax @annwax @gyncsm I had ptient asked me today about vitamins. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We are so pleased to have Sangeeta Agarawal @sanHelpsy founder of @Helpsy joining us for today's #gyncsm discussion! |
| Dee Sparacio @womenofteal RT @gyncsm: We are so pleased to have Sangeeta Agarawal @sanHelpsy founder of @Helpsy joining us for today's #gyncsm discussion! |
| GYN Cancer | #GYNCSM @gyncsm A reminder - #gyncsm is not a forum for individual medical advice and today's chat is solely informational and not a substitute for speaking w/ a healthcare professional who is familiar w/ your medical needs and history. |
| Akanksha Nayak @anayak2111 RT @gyncsm: We are so pleased to have Sangeeta Agarawal @sanHelpsy founder of @Helpsy joining us for today's #gyncsm discussion! |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: We are so pleased to have Sangeeta Agarawal @sanHelpsy founder of @Helpsy joining us for today's #gyncsm discussion! |
| GYN Cancer | #GYNCSM @gyncsm Keeping with our topic, the questions will be in the form of “Is it OK to...” Here comes the first one... We'll have time at the end for you to add some of yours :) #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @gyncsm @helpsy Thank you for the invitation! I look forward to our discussion on these topics so important for all of us! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: A reminder - #gyncsm is not a forum for individual medical advice and today's chat is solely informational and not a substitute for speaking w/ a healthcare professional who is familiar w/ your medical needs and history. |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: We are so pleased to have Sangeeta Agarawal @sanHelpsy founder of @Helpsy joining us for today's #gyncsm discussion! |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: Keeping with our topic, the questions will be in the form of “Is it OK to...” Here comes the first one... We'll have time at the end for you to add some of yours :) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T1: Is it OK to… take supplements and vitamins during chemotherapy? How about during radiation therapy? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Keeping with our topic, the questions will be in the form of “Is it OK to...” Here comes the first one... We'll have time at the end for you to add some of yours :) #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T1: T1: Is it OK to… take supplements and vitamins during chemotherapy? How about during radiation therapy? #gyncsm |
 | Cancer Hope Network @CancerHopeNet And you can follow along with #GYNCSM! |
| Christina Lizaso @btrfly12 RT @gyncsm: You can find an overview of tonight’s #gyncsm topics here: You can find an overview of tonight’s #gyncsm topics here: https://t.co/pr1HcQQvYp |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin T1: It is important to let your MD know any vitamins/supplements you are taking to ensure that they will not counteract your chemo #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @gyncsm T1: It's better to talk to your physician about any supplements you are taking so they can monitor interactions with drugs #gyncsm #supplements |
| Dee Sparacio @womenofteal RT @ShannonWestin: T1: T1: It is important to let your MD know any vitamins/supplements you are taking to ensure that they will not counteract your chemo #gyncsm |
| Akanksha Nayak @anayak2111 RT @gyncsm: T1: T1: Is it OK to… take supplements and vitamins during chemotherapy? How about during radiation therapy? #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin T1: For example, antioxidants can counteract the effect of chemotherapy by clearing out the free radicals that damage the cancer #gyncsm |
| Beth Fand Incollingo @FandIncollingo This advice came from Dr. Lichtenfeld at the American Cancer Society: https://t.co/GQhh89payY #gyncsm |
| Suzie Siegel @SuzieSiegel RT @ShannonWestin: T1: T1: It is important to let your MD know any vitamins/supplements you are taking to ensure that they will not counteract your chemo #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @FandIncollingo: This advice came from Dr. Lichtenfeld at the American Cancer Society: This advice came from Dr. Lichtenfeld at the American Cancer Society: https://t.co/GQhh89payY #gyncsm |
| Dee Sparacio @womenofteal You can check > Dietary Supplements During Cancer Treatment: Yes or No? https://t.co/Pa7vGx3XI2 #gyncsm |
| Christina Lizaso @btrfly12 T1: Even "baby aspirin" can lead to problems. Getting your doc, chemo nurse, pharmacist, etc. involved and aware is important. But don't think everything is an automatic no. #gyncsm |
| Suzie Siegel @SuzieSiegel RT @ShannonWestin: T1: T1: For example, antioxidants can counteract the effect of chemotherapy by clearing out the free radicals that damage the cancer #gyncsm |
| Dee Sparacio @womenofteal RT @FandIncollingo: This advice came from Dr. Lichtenfeld at the American Cancer Society: This advice came from Dr. Lichtenfeld at the American Cancer Society: https://t.co/GQhh89payY #gyncsm |
 | Rafael Roesler @RafaelRoesler RT @ShannonWestin: T1: T1: It is important to let your MD know any vitamins/supplements you are taking to ensure that they will not counteract your chemo #gyncsm |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: @gyncsm T1: @gyncsm T1: It's better to talk to your physician about any supplements you are taking so they can monitor interactions with drugs #gyncsm #supplements |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin T1: We recommend a simple multivitamin during treatment for cancer #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T1: Avoid taking high doses of antioxidant supplements during chemotherapy and radiation treatments as they may interfere with treatment #gyncsm #supplements |
| Sangeeta (Helpsy) @sanHelpsy @ShannonWestin T1: Yes exactly! It's important to know what the supplements do - what their mechanism of action is - vs. that of drug - so there isn't any interaction. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Topic 2 (T2:) coming up... #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T1: You can find more information about herb supplements on NCCIH's HerbList App and Memorial Sloan Kettering's About Herbs app #gyncsm #herbs #supplements |
| Dee Sparacio @womenofteal the ACS @AmericanCancer has a good resource on their website https://t.co/ZnCbiiblWO #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: T1: T1: You can find more information about herb supplements on NCCIH's HerbList App and Memorial Sloan Kettering's About Herbs app #gyncsm #herbs #supplements |
| Christina Lizaso @btrfly12 RT @womenofteal: the ACS @AmericanCancer has a good resource on their website https://t.co/ZnCbiiblWO #gyncsm |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: T1: T1: You can find more information about herb supplements on NCCIH's HerbList App and Memorial Sloan Kettering's About Herbs app #gyncsm #herbs #supplements |
| Sangeeta (Helpsy) @sanHelpsy T1: Exactly! There are herbs and supplements that can be taken safely. General rule of thumb is: - try not to start new things during tx - Check for interaction - Get help of a herbalist that is trained in working in cancer and western med #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2A: Is it OK to… exercise during treatment? Are there specific exercises that are good to do after abdominal surgery? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2A: T2A: Is it OK to… exercise during treatment? Are there specific exercises that are good to do after abdominal surgery? #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: T1: Exactly! There are herbs and supplements that can be taken safely. General rule of thumb is: T1: Exactly! There are herbs and supplements that can be taken safely. General rule of thumb is: - try not to start new things during tx - Check for interaction - Get help of a herbalist that is trained in working in cancer and western med #gyncsm |
 | Sandi Stanford @sandisues RT @NCICancerStats: Uterine #cancer is the 9th most common cancer in the United States, representing 3.6% of all new cancer cases. Learn more here: https://t.co/cdRhE4DJRd #GynCSM https://t.co/YzqgObHxHM |
 | Sarah Cassidy @CassidyFish2 Open communication matters. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: T2A: T2A: Is it OK to… exercise during treatment? Are there specific exercises that are good to do after abdominal surgery? #gyncsm |
| Ann Wax @annwax @gyncsm t1: supplements and vitamins are usually frowned on while taking chemotherapy. However, I worked with DR. Gaynor, and he had other thoughts about how beneficial it was to take them. #gyncsm #integrativeoncology #health |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin T2A: We absolutely encourage exercise during treatment for cancer - it can help reduce stress and manage symptoms such as fatigue #gyncsm |
| Dee Sparacio @womenofteal Yes it does! RT @CassidyFish2: Open communication matters. #gyncsm |
| Christina Lizaso @btrfly12 RT @CassidyFish2: Open communication matters. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @sanHelpsy: T1: Exactly! There are herbs and supplements that can be taken safely. General rule of thumb is: T1: Exactly! There are herbs and supplements that can be taken safely. General rule of thumb is: - try not to start new things during tx - Check for interaction - Get help of a herbalist that is trained in working in cancer and western med #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T1: In case of loss of appetite or desire to eat, talk to your health care team about nutrition consult so they can suggest recommendations to help improve taste and appetite #gyncsm #herbs #supplements |
| Sangeeta (Helpsy) @sanHelpsy @gyncsm T2: Start with light exercises - slow with yoga, walking or stretching, work your way up to cycling, swimming, aerobic exercise once you feel ready. Talk to your oncologist and care team to design the right fitness routine for you #gyncsm #beactive |
| Christina Lizaso @btrfly12 RT @ShannonWestin: T2A: T2A: We absolutely encourage exercise during treatment for cancer - it can help reduce stress and manage symptoms such as fatigue #gyncsm |
| Suzie Siegel @SuzieSiegel RT @sanHelpsy: T1: T1: In case of loss of appetite or desire to eat, talk to your health care team about nutrition consult so they can suggest recommendations to help improve taste and appetite #gyncsm #herbs #supplements |
| Sarah Cassidy @CassidyFish2 RT @ShannonWestin: T1: T1: For example, antioxidants can counteract the effect of chemotherapy by clearing out the free radicals that damage the cancer #gyncsm |
| Suzie Siegel @SuzieSiegel RT @ShannonWestin: T2A: T2A: We absolutely encourage exercise during treatment for cancer - it can help reduce stress and manage symptoms such as fatigue #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: T1: T1: In case of loss of appetite or desire to eat, talk to your health care team about nutrition consult so they can suggest recommendations to help improve taste and appetite #gyncsm #herbs #supplements |
| Sangeeta (Helpsy) @sanHelpsy @womenofteal @CassidyFish2 Very important! #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin T2A: After abdominal surgery, it's important to avoid anything that strains your core/abdomen, stick w walking & low impact exercise #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 I wondered this after my c-section. What abdominal exercises are safe? My doctor just kept saying "no exercise" #gyncsm https://t.co/KAddBKhAwE |
| Sangeeta (Helpsy) @sanHelpsy T2a: Supervised resistance training is good during and after treatment as it helps maintain muscle and bone mass #gyncsm #resistancetraining |
| Suzie Siegel @SuzieSiegel RT @sanHelpsy: T1: Exactly! There are herbs and supplements that can be taken safely. General rule of thumb is: T1: Exactly! There are herbs and supplements that can be taken safely. General rule of thumb is: - try not to start new things during tx - Check for interaction - Get help of a herbalist that is trained in working in cancer and western med #gyncsm |
 | Ann Becker-Schutte @DrBeckerSchutte Deepest apologies for my late arrival—the new kittens escaped into the garage and I was on a rescue mission. #gyncsm |
| Dee Sparacio @womenofteal RT @ShannonWestin: T2A: T2A: After abdominal surgery, it's important to avoid anything that strains your core/abdomen, stick w walking & low impact exercise #gyncsm |
| Suzie Siegel @SuzieSiegel RT @sanHelpsy: @gyncsm T2: @gyncsm T2: Start with light exercises - slow with yoga, walking or stretching, work your way up to cycling, swimming, aerobic exercise once you feel ready. Talk to your oncologist and care team to design the right fitness routine for you #gyncsm #beactive |
| Christina Lizaso @btrfly12 T2: What's the right exercise? General answer - the one that you will actually do :) For during treatment, check in with your doctor and listen to your body. #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: T2a: T2a: Supervised resistance training is good during and after treatment as it helps maintain muscle and bone mass #gyncsm #resistancetraining |
| Christina Lizaso @btrfly12 RT @ShannonWestin: T2A: T2A: After abdominal surgery, it's important to avoid anything that strains your core/abdomen, stick w walking & low impact exercise #gyncsm |
| Ann Wax @annwax @btrfly12 I agree with you. You have to really think the risks and benefits of waht you are taking and what you are doing with your body. #gyncsm #health #wellness |
| Ann Becker-Schutte @DrBeckerSchutte I’m Ann, psychologist from Kansas City, mental health moderator for #GYNCSM and new kitten mama. |
| Suzie Siegel @SuzieSiegel RT @ShannonWestin: T2A: T2A: After abdominal surgery, it's important to avoid anything that strains your core/abdomen, stick w walking & low impact exercise #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T2a: Try exercises like finger rolls, finger taps to help with neuropathy in your hands and fingers; exercises like calf raises, ankle circles, standing heel to toe for neuropathy in feet #gyncsm #neuropathy #simpleexercises |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @DrBeckerSchutte Hey there Ann!! #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @gyncsm T2: It's important to avoid exercises that can strain abdominal muscles. Important to work with PT #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @sanHelpsy: @gyncsm T2: @gyncsm T2: Start with light exercises - slow with yoga, walking or stretching, work your way up to cycling, swimming, aerobic exercise once you feel ready. Talk to your oncologist and care team to design the right fitness routine for you #gyncsm #beactive |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @sanHelpsy: T2a: T2a: Try exercises like finger rolls, finger taps to help with neuropathy in your hands and fingers; exercises like calf raises, ankle circles, standing heel to toe for neuropathy in feet #gyncsm #neuropathy #simpleexercises |
| Christina Lizaso @btrfly12 T2: There are even tutorials for seated yoga - you can get in your movement in many different ways. #gyncsm |
| Dee Sparacio @womenofteal T2a In my experience after initial surgery and carbo /taxol chemo I did very little exercise and was very fatigued. On Recurrence same chemo yet I tried to exercise every day and I had less fatigue. So I'm a believer that it helps. #gyncsm |
| Ann Wax @annwax @DrBeckerSchutte It is a nice feeling rescuing life. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T2a: Maintain a diary to record exercise sessions. Plan exercise for good and bad days, days when you experience intense symptoms #gyncsm #stayingactive #exercisediary |
| Dee Sparacio @womenofteal @DrBeckerSchutte Hi Ann Glad the rescue was a success. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @gyncsm T2: Since you may not be active during this time, deep breathing and incentive spirometer is helpful to keep good circulation #gyncsm |
| Christina Lizaso @btrfly12 @DrBeckerSchutte A grand adventure. Thanks for joining :) #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: T2a: T2a: Maintain a diary to record exercise sessions. Plan exercise for good and bad days, days when you experience intense symptoms #gyncsm #stayingactive #exercisediary |
| Ann Becker-Schutte @DrBeckerSchutte T2A: And exercise (appropriate for your current level of health) is excellent for your mental health, too. #GYNCSM |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin T2: Once you are healed from surgery, yoga and high intensity exercise can be awesome to help restore your energy and mental health #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: T2a: T2a: Try exercises like finger rolls, finger taps to help with neuropathy in your hands and fingers; exercises like calf raises, ankle circles, standing heel to toe for neuropathy in feet #gyncsm #neuropathy #simpleexercises |
| Sangeeta (Helpsy) @sanHelpsy T2: You can start by lying with your head on a pillow, knees bent and a shoulder-width apart, feet flat on the bed #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: @gyncsm T2: @gyncsm T2: It's important to avoid exercises that can strain abdominal muscles. Important to work with PT #gyncsm |
| Dee Sparacio @womenofteal T2 When the time is right - Women can also do pelvic exercises via @PelvicGuru1 #gyncsm https://t.co/p6VnKv163t #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @womenofteal: T2 When the time is right - Women can also do pelvic exercises via @PelvicGuru1 #gyncsm https://t.co/p6VnKv163t #gyncsm |
| Ann Wax @annwax @sanHelpsy @gyncsm T2: I also recommend #meditation . It helps to clear the mind for healing. #gyncsm |
 | Nita Lee @NitaKarnikLee RT @womenofteal: T2 When the time is right - Women can also do pelvic exercises via @PelvicGuru1 #gyncsm https://t.co/p6VnKv163t #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @annwax: @sanHelpsy @gyncsm T2: @sanHelpsy @gyncsm T2: I also recommend #meditation . It helps to clear the mind for healing. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T3: Is it OK to… eat raw fruits and vegetables during treatment? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T3: T3: Is it OK to… eat raw fruits and vegetables during treatment? #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: T2 When the time is right - Women can also do pelvic exercises via @PelvicGuru1 #gyncsm https://t.co/p6VnKv163t #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @DrBeckerSchutte t2: Yes exercise will help to improve mood! Who can't use that during this difficult time. #gyncsm |
| Sarah Cassidy @CassidyFish2 @DrBeckerSchutte Post-chat, we get kitten pics, right?! ;-) #gyncsm |
| Ann Wax @annwax @ShannonWestin Abdominal surgery is very painful. #gyncsm |
| Akanksha Nayak @anayak2111 RT @gyncsm: T2A: T2A: Is it OK to… exercise during treatment? Are there specific exercises that are good to do after abdominal surgery? #gyncsm |
| Akanksha Nayak @anayak2111 RT @gyncsm: T3: T3: Is it OK to… eat raw fruits and vegetables during treatment? #gyncsm |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: T1: Exactly! There are herbs and supplements that can be taken safely. General rule of thumb is: T1: Exactly! There are herbs and supplements that can be taken safely. General rule of thumb is: - try not to start new things during tx - Check for interaction - Get help of a herbalist that is trained in working in cancer and western med #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: T2A: T2A: And exercise (appropriate for your current level of health) is excellent for your mental health, too. #GYNCSM |
| Sangeeta (Helpsy) @sanHelpsy @annwax @gyncsm awesome! so helpful! #gyncsm |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: T2a: T2a: Maintain a diary to record exercise sessions. Plan exercise for good and bad days, days when you experience intense symptoms #gyncsm #stayingactive #exercisediary |
| Sangeeta (Helpsy) @sanHelpsy T3: Try to include colorful fruits and vegetables, at least 2.5 cups every day, be sure to wash them thoroughly #gyncsm #fruitsandvegetables #eatwell |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: T2a: T2a: Try exercises like finger rolls, finger taps to help with neuropathy in your hands and fingers; exercises like calf raises, ankle circles, standing heel to toe for neuropathy in feet #gyncsm #neuropathy #simpleexercises |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: T2a: T2a: Supervised resistance training is good during and after treatment as it helps maintain muscle and bone mass #gyncsm #resistancetraining |
| Sangeeta (Helpsy) @sanHelpsy @vleeLCSW T2: Good point about swimming! #gyncsm |
| Ann Wax @annwax @womenofteal keeping your body moving is essential for healing. #gyncsm #exercise |
| Ann Becker-Schutte @DrBeckerSchutte T2: Another benefit of exercise during treatment is that you can remind yourself of what your body can still do—critically important when you feel like your body is betraying/attacking you. #gyncsm |
 | Mimi @Mimiinmendon @gyncsm T2: Agree working with a PT is the way to go. In my experience, it’s not something that’s routinely recommended for GYN or breast surgery. Patient should ask for a referral. Hi everyone, Mary Ellen here, five years out stage 2 OVCA. #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: T3: T3: Try to include colorful fruits and vegetables, at least 2.5 cups every day, be sure to wash them thoroughly #gyncsm #fruitsandvegetables #eatwell |
| Sarah Cassidy @CassidyFish2 Check out T2 in #gyncsm for these and other terrific suggestions re: #exercise and #activity during treatment. |
| Sangeeta (Helpsy) @sanHelpsy T3: Include citrus fruits like grapefruits and oranges and deep yellow and dark green vegetables #gyncsm #colorfulfruitsandveggies |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @sanHelpsy: T3: T3: Try to include colorful fruits and vegetables, at least 2.5 cups every day, be sure to wash them thoroughly #gyncsm #fruitsandvegetables #eatwell |
| Ann Wax @annwax @btrfly12 t2: #yoga is great for the mind and for the body. #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: T2: T2: Another benefit of exercise during treatment is that you can remind yourself of what your body can still do—critically important when you feel like your body is betraying/attacking you. #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: T3: T3: Try to include colorful fruits and vegetables, at least 2.5 cups every day, be sure to wash them thoroughly #gyncsm #fruitsandvegetables #eatwell |
| Beth Fand Incollingo @FandIncollingo A3. This literature review found no need for a neutropenic diet: https://t.co/FBixFWj5Nt #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @gyncsm T3: very imp to wash them throughly before eating. Check any warnings about breakout of disease ##gyncsm |
| Christina Lizaso @btrfly12 RT @Mimiinmendon: @gyncsm T2: @gyncsm T2: Agree working with a PT is the way to go. In my experience, it’s not something that’s routinely recommended for GYN or breast surgery. Patient should ask for a referral. Hi everyone, Mary Ellen here, five years out stage 2 OVCA. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T3: Vegetable sprouts such as mung bean, alfalfa, broccoli and radish should not be eaten raw, only consume pasteurized juices #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @ShannonWestin: T2: T2: Once you are healed from surgery, yoga and high intensity exercise can be awesome to help restore your energy and mental health #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T3: Do not consume from outside - fresh salsa or salad dressings found in refrigerated sections of the grocery store; shelf-stable salsa and dressings are okay #gyncsm #whattoavoid |
| Christina Lizaso @btrfly12 RT @FandIncollingo: A3. This literature review found no need for a neutropenic diet: A3. This literature review found no need for a neutropenic diet: https://t.co/FBixFWj5Nt #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @DrBeckerSchutte Love the way you think! I'm going to use this when I talk to my patients! #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: T3: Include citrus fruits like grapefruits and oranges and deep yellow and dark green vegetables #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T3: Avoid raw fruits and vegetables in case of diarrhea or sore throat #gyncsm #whattoavoid |
| GYN Cancer | #GYNCSM @gyncsm T3 cont'd - What about soy and soy products? #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin T3: Definitely eat your fruits and vegetables - so many amazing vitamins for you! During chemotherapy, make sure you wash them well #gyncsm |
| Dee Sparacio @womenofteal @Mimiinmendon @gyncsm Hi Mary Ellen - Welcome ! #gyncsm |
| Ann Wax @annwax @sanHelpsy I also tell patients that beware of coffee and soda. You don't get proper hydration from those products. #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @DrBeckerSchutte: T2: T2: Another benefit of exercise during treatment is that you can remind yourself of what your body can still do—critically important when you feel like your body is betraying/attacking you. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: T2a In my experience after initial surgery and carbo /taxol chemo I did very little exercise and was very fatigued. On Recurrence same chemo yet I tried to exercise every day and I had less fatigue. So I'm a believer that it helps. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @btrfly12: T2: T2: There are even tutorials for seated yoga - you can get in your movement in many different ways. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @FandIncollingo That's a great find! I think if it's home cooked or washed throughly, then it's fine #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @ShannonWestin: T2A: T2A: After abdominal surgery, it's important to avoid anything that strains your core/abdomen, stick w walking & low impact exercise #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T3: No need to avoid raw food completely! Avoid outside raw food. Avoid raw sushi. #gyncsm |
| Ann Wax @annwax @sanHelpsy also reflexology does help #gyncsm #health #wellness |
| Ann Becker-Schutte @DrBeckerSchutte RT @sanHelpsy: T2a: T2a: Supervised resistance training is good during and after treatment as it helps maintain muscle and bone mass #gyncsm #resistancetraining |
| Dee Sparacio @womenofteal RT @ShannonWestin: T3: T3: Definitely eat your fruits and vegetables - so many amazing vitamins for you! During chemotherapy, make sure you wash them well #gyncsm |
| Christina Lizaso @btrfly12 RT @annwax: @btrfly12 t2: @btrfly12 t2: #yoga is great for the mind and for the body. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @sanHelpsy: T2a: T2a: Try exercises like finger rolls, finger taps to help with neuropathy in your hands and fingers; exercises like calf raises, ankle circles, standing heel to toe for neuropathy in feet #gyncsm #neuropathy #simpleexercises |
| Sangeeta (Helpsy) @sanHelpsy T3 cont'd: Soy products contain phytoestrogens and not estrogen, soy contains essential amino acids, magnesium, potassium, fiber, and other vitamins. Try picking organic sources of soy #gyncsm #gyncsm #soy #nutrients |
| Sangeeta (Helpsy) @sanHelpsy @annwax aahhh! yes very much so! Very relaxing for sleep, anxiety, pain #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T3 cont'd - What about soy and soy products? #gyncsm |
| Suzie Siegel @SuzieSiegel T3. I'm all for a healthy diet, but #gyncsm #sarcoma patients need to remember that diet isn't tied to sarcoma. I don't want patients to worry that, if they don't follow these recommendations, they risk a recurrence. |
| Sangeeta (Helpsy) @sanHelpsy T3 cont'd: Soy dietary supplements may not be a healthy choice, consult your physician #gyncsm #soy |
| Sangeeta (Helpsy) @sanHelpsy T3: Exactly! cooked vegetables are tolerated better! Add spices to make it tastier and easier to digest! #gyncsm |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: T3: T3: Do not consume from outside - fresh salsa or salad dressings found in refrigerated sections of the grocery store; shelf-stable salsa and dressings are okay #gyncsm #whattoavoid |
| Dee Sparacio @womenofteal T3 Here is some info on Soy from Tamar Rothenberg, RDN https://t.co/VJzZFgOcoV #gyncsm |
| Dee Sparacio @womenofteal RT @FandIncollingo: A3. This literature review found no need for a neutropenic diet: A3. This literature review found no need for a neutropenic diet: https://t.co/FBixFWj5Nt #gyncsm |
| Christina Lizaso @btrfly12 T3: @DanaFarber and @livestrong have great nutrition resources and recipes for during and post treatment. #gyncsm |
| Dee Sparacio @womenofteal T3 and another article on soy from @fredhutch https://t.co/LVtmZaVlDF #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @womenofteal T3: Exactly! No harm in eating soy. Just ensure your body can digest it. Eat organic soy products. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T3: T3: @DanaFarber and @livestrong have great nutrition resources and recipes for during and post treatment. #gyncsm |
| Christina Lizaso @btrfly12 RT @SuzieSiegel: T3. I'm all for a healthy diet, but #gyncsm #sarcoma patients need to remember that diet isn't tied to sarcoma. I don't want patients to worry that, if they don't follow these recommendations, they risk a recurrence. |
| Sangeeta (Helpsy) @sanHelpsy T3: And @AmericanCancer and @NIH_NCCIH does as well! #gyncsm |
| Dee Sparacio @womenofteal Sorry I am missing some tweets Tweetdeck is acting up. I switched to https://t.co/E8vzS379C7 #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @womenofteal: T3 and another article on soy from @fredhutch https://t.co/LVtmZaVlDF #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: T3: T3: And @AmericanCancer and @NIH_NCCIH does as well! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4: Is it OK to… have sexual relations while in treatment? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4: T4: Is it OK to… have sexual relations while in treatment? #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @CassidyFish2: Check out T2 in #gyncsm for these and other terrific suggestions re: Check out T2 in #gyncsm for these and other terrific suggestions re: #exercise and #activity during treatment. |
| Christina Lizaso @btrfly12 RT @sanHelpsy: T3: T3: And @AmericanCancer and @NIH_NCCIH does as well! #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T3 cont'd: Don't fear soy, you can eat soy foods if you enjoy them or skip them if you dislike soy; soy does not increase risk of ovarian or endometrial cancer #gyncsm #soy |
| Ann Becker-Schutte @DrBeckerSchutte RT @sanHelpsy: T3: T3: Exactly! cooked vegetables are tolerated better! Add spices to make it tastier and easier to digest! #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T4: No reason to avoid sexual relations, it is not sexually transmitted or contagious and won't cause the cancer to return #gyncsm #cancercare |
| Dee Sparacio @womenofteal T4 : @OncoLinkTeam shares good info on their Guide to Sexuality during & after cancer treatment https://t.co/hHoLz3hakA #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @gyncsm T4: If you are in the mood or have energy for it! Go for it! Sex releases happy chemicals and builds closer bond with partner. #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: T3 cont'd: T3 cont'd: Don't fear soy, you can eat soy foods if you enjoy them or skip them if you dislike soy; soy does not increase risk of ovarian or endometrial cancer #gyncsm #soy |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: T4: T4: Is it OK to… have sexual relations while in treatment? #gyncsm |
| Christina Lizaso @btrfly12 T3: The Savor Health blog is another good resource on nutrition during cancer treatment https://t.co/8mzzcpfhjL #gyncsm |
| Akanksha Nayak @anayak2111 RT @womenofteal: T3 and another article on soy from @fredhutch https://t.co/LVtmZaVlDF #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin T4: You can absolutely have sex during treatment - there is no risk as long as you have the energy for it! #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T4 : T4 : @OncoLinkTeam shares good info on their Guide to Sexuality during & after cancer treatment https://t.co/hHoLz3hakA #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @sanHelpsy: @gyncsm T4: @gyncsm T4: If you are in the mood or have energy for it! Go for it! Sex releases happy chemicals and builds closer bond with partner. #gyncsm |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: T3: T3: And @AmericanCancer and @NIH_NCCIH does as well! #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: T4 : T4 : @OncoLinkTeam shares good info on their Guide to Sexuality during & after cancer treatment https://t.co/hHoLz3hakA #gyncsm |
| Dee Sparacio @womenofteal RT @ShannonWestin: T4: T4: You can absolutely have sex during treatment - there is no risk as long as you have the energy for it! #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T4: Fatigue, pain, and discomfort after surgery could interfere with sexual relations, use vaginal lubricants to alleviate the pain #gyncsm #pain #surgery" |
| Dee Sparacio @womenofteal RT @sanHelpsy: T4: T4: No reason to avoid sexual relations, it is not sexually transmitted or contagious and won't cause the cancer to return #gyncsm #cancercare |
| Sangeeta (Helpsy) @sanHelpsy T4: Radiation may cause vaginal swelling and bladder inflammation, sexual relations may be comfortable after a short healing period of about 2-4 weeks #gyncsm #healing #cancercare |
| Dee Sparacio @womenofteal RT @sanHelpsy: T4: T4: Fatigue, pain, and discomfort after surgery could interfere with sexual relations, use vaginal lubricants to alleviate the pain #gyncsm #pain #surgery" |
| Dee Sparacio @womenofteal RT @btrfly12: T3: T3: The Savor Health blog is another good resource on nutrition during cancer treatment https://t.co/8mzzcpfhjL #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: T4: T4: Radiation may cause vaginal swelling and bladder inflammation, sexual relations may be comfortable after a short healing period of about 2-4 weeks #gyncsm #healing #cancercare |
| Sangeeta (Helpsy) @sanHelpsy T4: Here is another good one - https://t.co/BpBl76UQEq #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T4: Talk about any changes in your body image and sexual health with your health care team, support groups #gyncsm #sexualhealth #support |
| Ann Becker-Schutte @DrBeckerSchutte RT @sanHelpsy: T4: T4: Talk about any changes in your body image and sexual health with your health care team, support groups #gyncsm #sexualhealth #support |
| Ann Becker-Schutte @DrBeckerSchutte RT @sanHelpsy: T4: T4: Here is another good one - https://t.co/BpBl76UQEq #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm |
| Dee Sparacio @womenofteal T4 : Mindy Schiffman, PhD. talks about Sexuality and Intimacy after Cancer in this video https://t.co/8bw9Lr79Zc #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: T4: T4: Here is another good one - https://t.co/BpBl76UQEq #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: T4: T4: Here is another good one - https://t.co/BpBl76UQEq #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @mcquadeMDLAc We figure its a good idea to help balance out nutrition in patients who may not be able to eat the typical "three square meals" a day #gyncsm |
 | Tracy Sher, DPT @PelvicGuru1 RT @womenofteal: T2 When the time is right - Women can also do pelvic exercises via @PelvicGuru1 #gyncsm https://t.co/p6VnKv163t #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T4: Cuddling, kissing and other forms of intimacy feel good too! :) #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T4: It's very important to bring up this topic and discuss any questions. Many times providers and patients both avoid it, but it's an important part of our life that needs discussion and clarity #GYNCSM |
| GYN Cancer | #GYNCSM @gyncsm T6: We’ll now open the floor to allow our participants to ask other “Is it OK to...” questions. What haven't covered? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T6: T6: We’ll now open the floor to allow our participants to ask other “Is it OK to...” questions. What haven't covered? #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: T4: T4: It's very important to bring up this topic and discuss any questions. Many times providers and patients both avoid it, but it's an important part of our life that needs discussion and clarity #GYNCSM |
| Suzie Siegel @SuzieSiegel We need to find a balance in telling patients what may help them without making them feel guilty for not following all the recommendations on exercising and diet. (I always feel guilty during these conversations.) #gyncsm |
| Mimi @Mimiinmendon @gyncsm T4 Yes! I asked and was told to wait 24 or 48? hours after infusion. #gyncsm |
 | Manda K @twittmanda RT @TargetedOnc: "Unfortunately, all patients on PARP inhibitors eventually develop resistance." https://t.co/YfIBBxRKCE #PARP #OvarianCancer #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: T4: T4: It's very important to bring up this topic and discuss any questions. Many times providers and patients both avoid it, but it's an important part of our life that needs discussion and clarity #GYNCSM |
| Christina Lizaso @btrfly12 T5 actually! How about getting your flu shot? I think it is ok with chemo and radiation but they aren't sure about getting it with immunotherapy and other new kinds of treatment.... #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte Oh sexuality—this topic is tough even without the health challenge added to it. I spend a lot of time talking with clients in all stages of health about the value of candid talk about sex and intimacy. #gyncsm |
| Christina Lizaso @btrfly12 RT @SuzieSiegel: We need to find a balance in telling patients what may help them without making them feel guilty for not following all the recommendations on exercising and diet. (I always feel guilty during these conversations.) #gyncsm |
| Ann Wax @annwax @gyncsm T6: the emotional element, #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: Oh sexuality—this topic is tough even without the health challenge added to it. I spend a lot of time talking with clients in all stages of health about the value of candid talk about sex and intimacy. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @SuzieSiegel Yes very true! There seems to be so much pressure to change diet and lifestyle overnight while going through marathon like treatment. It's important to share info, but help to pace #gyncsm |
| Dee Sparacio @womenofteal You are so right. That is why the relationship - ability to ask questions - you have with your healthcare provider is so important. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @btrfly12 T6: Usually it's given, but based on some treatments like immunotherapy - it may be held for a bit. Important to check with oncologist #gyncsm |
| Dee Sparacio @womenofteal T6 Is it ok to be around kids or adults ( shingles ) who have had vaccines ? #gyncsm |
| Christina Lizaso @btrfly12 @annwax @gyncsm ? as in .... YES, okay to decline things, change some traditions, etc? It is okay to say no thank you, I don't want to hear about your cancer cure :) #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: @SuzieSiegel Yes very true! There seems to be so much pressure to change diet and lifestyle overnight while going through marathon like treatment. It's important to share info, but help to pace #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @annwax @gyncsm T6: Yes the elephant in the room! How can you go through cancer without feeling emotional upheaval. Got to be a Vulcan from StarTrek! #gyncsm |
| Christina Lizaso @btrfly12 T5/6: For nutrition and exercise... any different recommendations for immunotherapy vs. more standard treatments? Or is there not much studies on that yet? #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @womenofteal T6: Most are safe, but when WBC is very low, better to avoid contact during days of nadir/lowest white blood cell count #gyncsm |
| Dee Sparacio @womenofteal @annwax @gyncsm Is it OK to cry, yell , get angry and be sad ? I say it sure is. #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: @womenofteal T6: @womenofteal T6: Most are safe, but when WBC is very low, better to avoid contact during days of nadir/lowest white blood cell count #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: You are so right. That is why the relationship - ability to ask questions - you have with your healthcare provider is so important. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin T5/6: so far, our recommendations for nutrition and exercise don't change for immunotherapy - we are still learning tho #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thank you so much to @womenofteal for this informative topic and to our guest @sanHelpsy and others for sharing your knowledge with #gyncsm. Time to share your closing thoughts - we like to start the tweets TIL: (Today I Learned)... |
| Ann Wax @annwax @DrBeckerSchutte i know. There normal is not a reality. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: Thank you so much to @womenofteal for this informative topic and to our guest @sanHelpsy and others for sharing your knowledge with #gyncsm. Time to share your closing thoughts - we like to start the tweets TIL: (Today I Learned)... |
| Dee Sparacio @womenofteal RT @ShannonWestin: T5/6: T5/6: so far, our recommendations for nutrition and exercise don't change for immunotherapy - we are still learning tho #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm .@sanhelpsy – Thanks so much for your time. Please share with us where we can find your resources on tonight’s topic. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @btrfly12 T5/6: Many times with immunotherapy, you will feel less side effects, so hopefully nutrition and exercise is ok. But if any symptoms develop, then imp. to act right away as they may turn severe sooner. Also, avoid things that increase risk of infection #gyncsm |
| Ann Wax @annwax @gyncsm @womenofteal @sanHelpsy til: what a great social media #gyncsm is. |
| Dee Sparacio @womenofteal #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: .@sanhelpsy – Thanks so much for your time. Please share with us where we can find your resources on tonight’s topic. #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm :) |
| Cancer Hope Network @CancerHopeNet RT @womenofteal: You are so right. That is why the relationship - ability to ask questions - you have with your healthcare provider is so important. #gyncsm |
| Ann Wax @annwax @gyncsm @sanHelpsy thank you. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: @annwax @gyncsm Is it OK to cry, yell , get angry and be sad ? I say it sure is. #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: @btrfly12 T5/6: @btrfly12 T5/6: Many times with immunotherapy, you will feel less side effects, so hopefully nutrition and exercise is ok. But if any symptoms develop, then imp. to act right away as they may turn severe sooner. Also, avoid things that increase risk of infection #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: @btrfly12 T5/6: @btrfly12 T5/6: Many times with immunotherapy, you will feel less side effects, so hopefully nutrition and exercise is ok. But if any symptoms develop, then imp. to act right away as they may turn severe sooner. Also, avoid things that increase risk of infection #gyncsm |
| Ann Wax @annwax Have a good evening and a safe day for tomorrow. Pleasure to be part of this chat. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @gyncsm Thank you .@gyncsm - You can find info on 'what is OK' in .@helpsyhealth app and website. We have 30k curated remedies for most common side effects for cancer that are OK. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @sanHelpsy: @gyncsm Thank you .@gyncsm - You can find info on 'what is OK' in .@helpsyhealth app and website. We have 30k curated remedies for most common side effects for cancer that are OK. #gyncsm |
| Dee Sparacio @womenofteal @annwax So happy you could join us. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin Thanks everyone for a great chat! Good night!!! #gyncsm |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @journeycancer @DrBeckerSchutte |
| Sangeeta (Helpsy) @sanHelpsy @gyncsm We also share chats and useful articles regularly and 10k community resources. You can unlock Helpsy iphone app with code 'careplanX' #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @sanHelpsy: @gyncsm Thank you .@gyncsm - You can find info on 'what is OK' in .@helpsyhealth app and website. We have 30k curated remedies for most common side effects for cancer that are OK. #gyncsm |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: @gyncsm Thank you .@gyncsm - You can find info on 'what is OK' in .@helpsyhealth app and website. We have 30k curated remedies for most common side effects for cancer that are OK. #gyncsm |
| Dee Sparacio @womenofteal @ShannonWestin Thanks for being here. #gyncsm |
| Akanksha Nayak @anayak2111 RT @gyncsm: Thank you so much to @womenofteal for this informative topic and to our guest @sanHelpsy and others for sharing your knowledge with #gyncsm. Time to share your closing thoughts - we like to start the tweets TIL: (Today I Learned)... |
| Ann Becker-Schutte @DrBeckerSchutte Emotional upheaval. Anger and frustration sometimes. Resentment of the healthy. Joy and gratitude and the whole shebang. You’re allowed to feel them all. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @annwax @gyncsm Thank you for joining us! You were wonderful! #gyncsm |
| Christina Lizaso @btrfly12 Thanks for all the great resources you have at @helpsyhealth to help cancer patients improve quality of life. #gyncsm |
| Cancer Hope Network @CancerHopeNet This is a place where peer support from other survivors (like our Support Volunteers!) can be helpful too. #sexualhealth #gyncsm #NotJustYou |
| Ann Becker-Schutte @DrBeckerSchutte RT @btrfly12: Thanks for all the great resources you have at @helpsyhealth to help cancer patients improve quality of life. #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: @gyncsm We also share chats and useful articles regularly and 10k community resources. You can unlock Helpsy iphone app with code 'careplanX' #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: Emotional upheaval. Anger and frustration sometimes. Resentment of the healthy. Joy and gratitude and the whole shebang. You’re allowed to feel them all. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone for the wonderful conversation. Next #gyncsm chat: Wed Sept 12th 2018 at 9pmET on We need support - Where do we find it? That chat will mark our 5th anniversary as a twitter community :) |
| Dee Sparacio @womenofteal @sanHelpsy @gyncsm Thank you so much for being our guests and sharing such valuable information with us. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @womenofteal @btrfly12 @ShannonWestin @journeycancer @DrBeckerSchutte Thank you so much for this wonderful opportunity to discuss about 'What is OK during treatment' . #gyncsm Please check out useful resources available for our community at .@helpsyhealth including app with access code 'careplanX' |
| Dee Sparacio @womenofteal RT @btrfly12: Thanks for all the great resources you have at @helpsyhealth to help cancer patients improve quality of life. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| GYN Cancer | #GYNCSM @gyncsm Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @btrfly12 @helpsyhealth Thank you! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks to everyone for the wonderful conversation. Next #gyncsm chat: Thanks to everyone for the wonderful conversation. Next #gyncsm chat: Wed Sept 12th 2018 at 9pmET on We need support - Where do we find it? That chat will mark our 5th anniversary as a twitter community :) |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @sanHelpsy - thank you so much for being here - your insight was awesome! @womenofteal @btrfly12 @journeycancer @DrBeckerSchutte #gyncsm |
| Christina Lizaso @btrfly12 RT @CancerHopeNet: This is a place where peer support from other survivors (like our Support Volunteers!) can be helpful too. #sexualhealth #gyncsm #NotJustYou |
| Ann Wax @annwax @btrfly12 The flu shot is still controversial for some patients #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| Sangeeta (Helpsy) @sanHelpsy @DrBeckerSchutte Totally! There is just so much streams of emotions gushing through! Important to feel them and to find healthy ways to release them. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @DrBeckerSchutte I find funny TV show helps when I can't take it, and journaling when I'm ready to deal with the issue #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @ShannonWestin Thank you for joining! You had great points! Loved it! #gyncsm |
| Christina Lizaso @btrfly12 RT @sanHelpsy: @womenofteal @btrfly12 @ShannonWestin @journeycancer @DrBeckerSchutte Thank you so much for this wonderful opportunity to discuss about 'What is OK during treatment' . #gyncsm Please check out useful resources available for our community at .@helpsyhealth including app with access code 'careplanX' |
| Sangeeta (Helpsy) @sanHelpsy RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
 | Amanda Crowell Itliong @MIShouldTalk Sorry I missed a great #gyncsm! Will review! Tonight I was grieving. It’s my 10th cancerversary of 1st dx. I’m usually only sunshine and gratitude, but today I reflected on all that I’ve lost (health, body, looks, marriage, fertility, career, financial security...) It’s heavy. |
| Christina Lizaso @btrfly12 RT @sanHelpsy: @DrBeckerSchutte I find funny TV show helps when I can't take it, and journaling when I'm ready to deal with the issue #gyncsm |
| Dee Sparacio @womenofteal Here is the @AmericanCancer link again https://t.co/6U2mjiPsWa #gyncsm |
| Dee Sparacio @womenofteal @MIShouldTalk Sorry you are having a rough time today. We do not travel an easy road do we? hugs. #gyncsm |
| Christina Lizaso @btrfly12 Such great self-care! Take that time you need. I have some annual "dark days" - I let myself wallow and mope in measure. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte #GYNCSM, as promised, kitten pics: https://t.co/QsisXDRonr |
 | Wafik S. El-Deiry, MD, PhD, FACP @weldeiry The latest The Cancer Plus Daily! https://t.co/ysiVtNX4HA Thanks to @kheller @stephaniemlee @dgermain21 #gyncsm #cancer |
#GynCSM content from Twitter.