#GynCSM Transcript

Healthcare social media transcript of the #GynCSM hashtag. (). See #GynCSM Influencers.

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GYN Cancer | #GYNCSM @gyncsm
Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
GYN Cancer | #GYNCSM @gyncsm
Our co-moderators are @womenofteal @btrfly12 #gyncsm
NCI Cancer Stats @ncicancerstats
Endometrial cancer is most frequently diagnosed among women aged 45-74. https://t.co/HZ47dthIxa #GynCSM https://t.co/NVQxpw13aj
GYN Cancer | #GYNCSM @gyncsm
Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
GYN Cancer | #GYNCSM @gyncsm
We start out with intro's - Please take a moment to introduce yourselves. We're glad you are here :) #gyncsm
Dee Sparacio @womenofteal
Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger, author & co-moderator #gyncsm
Katie Smith @katielizsmith
So honored to be able to take part in the #gyncsm tweet chat tonight about GTD.
Christina Lizaso @btrfly12
Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm
Dee Sparacio @womenofteal
RT @katielizsmith: So honored to be able to take part in the #gyncsm tweet chat tonight about GTD.
Merry J Markham, MD @drmarkham
Hi all. I'm a gynecologic medical oncologist at @UFHealthCancer in Gainesville, FL. #gyncsm
Dee Sparacio @womenofteal
@katielizsmith Glad you are able to join us. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
@katielizsmith Thanks for being here and for sharing your story on the #gyncsm blog: https://t.co/Rw5nIhjXBQ
Dee Sparacio @womenofteal
RT @gyncsm: @katielizsmith Thanks for being here and for sharing your story on the #gyncsm blog: https://t.co/Rw5nIhjXBQ
Rick Boulay,MD @journeycancer
Hello Everyone. Rick Boulay MD. Gyn Oncologist Allentown PA #gyncsm
Jen Burzawa @jburzawa
RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
z @zebrafinch
RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
Shannon Westin @shannonwestin
RT @gyncsm: Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
z @zebrafinch
RT @gyncsm: We start out with intro's - Please take a moment to introduce yourselves. We're glad you are here :) #gyncsm
Dee Sparacio @womenofteal
@DrMarkham @UFHealthCancer @journeycancer Hi Merry and Rick! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are he…
GYN Cancer | #GYNCSM @gyncsm
Pls continue intro's & welcomes - we'll start in w/ the "ground rules" :) #gyncsm
GYN Cancer | #GYNCSM @gyncsm
The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUuJIrY
Merry J Markham, MD @drmarkham
@womenofteal hi Dee & Rick! @journeycancer #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUuJIrY
Dee Sparacio @womenofteal
Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #gyncsm
Dee Sparacio @womenofteal
Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal info #gyncsm
Cancer Hope Network @cancerhopenet
RT @womenofteal: Pls join/share #gyncsm chat Wed. Aug 9, 2017 9pm EST https://t.co/BPqCcHJFCC https://t.co/9wE9LM1R3k
GYN Cancer | #GYNCSM @gyncsm
#gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience.
Jen Burzawa @jburzawa
So glad to be able to join you all. I am a gynecologic oncologist @MDAndersonNews #gyncsm
Dee Sparacio @womenofteal
#gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest
Shannon Westin @shannonwestin
Hey all - Gyn Oncologist from @MDAndersonNews - happy to be here #gyncsm
Dee Sparacio @womenofteal
@jburzawa @MDAndersonNews Welcome Jen. Thanks for joining us. #gyncsm
Shannon Westin @shannonwestin
RT @womenofteal: #gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest
GYN Cancer | #GYNCSM @gyncsm
We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm
Dee Sparacio @womenofteal
@ShannonWestin @MDAndersonNews Hi Shannon! #gyncsm
Rick Boulay,MD @journeycancer
RT @gyncsm: #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience.
Merry J Markham, MD @drmarkham
@ShannonWestin Hi there! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Tonight on #gyncsm we'll discuss two rare cancers: GTD-Gestational trophoblastic disease and Primary Peritoneal Cancer
Dee Sparacio @womenofteal
Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat
Dee Sparacio @womenofteal
RT @gyncsm: Tonight on #gyncsm we'll discuss two rare cancers: GTD-Gestational trophoblastic disease and Primary Peritoneal Cancer
Shannon Westin @shannonwestin
@journeycancer Hey Rick!! #gyncsm
Dee Sparacio @womenofteal
We’ll use PPC for primary peritoneal and GTD for Gestational trophoblastic disease #gyncsm
Shannon Westin @shannonwestin
@DrMarkham Hi Merry! How are you?? #gyncsm
GYN Cancer | #GYNCSM @gyncsm
RT @womenofteal: Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat
GYN Cancer | #GYNCSM @gyncsm
See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/TNKgDIdjD4
Nicole D. Fleming MD @nicoleflemingmd
Hello, glad to be joining my first tweet chat #gyncsm Gyn Oncologist from @MDAndersonNews
Christina Lizaso @btrfly12
RT @gyncsm: See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/TNKgDIdjD4
Kathleen Maxian @kathleenmaxian
#gyncsm checking in for tonight's chat
Dee Sparacio @womenofteal
@nicoleflemingmd @MDAndersonNews So happy to have you join us. #gyncsm
Shannon Westin @shannonwestin
@nicoleflemingmd @MDAndersonNews Welcome Nicole! @MDAndersonNews represent!!! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
@nicoleflemingmd Great to have you join! #gyncsm
Shannon Westin @shannonwestin
RT @gyncsm: See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/TNKgDIdjD4
Shannon Westin @shannonwestin
RT @womenofteal: We’ll use PPC for primary peritoneal and GTD for Gestational trophoblastic disease #gyncsm
Merry J Markham, MD @drmarkham
@nicoleflemingmd @MDAndersonNews Welcome! #gyncsm
Dee Sparacio @womenofteal
@KathleenMaxian Good to see you tonight. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
@KathleenMaxian welcome :) Topic 1 (T1:) coming up... #gyncsm
Shannon Westin @shannonwestin
@womenofteal @MDAndersonNews Hey there Dee!! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but he…
Jen Burzawa @jburzawa
Hi @nicoleflemingmd- welcome! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T1: What is Primary Peritoneal Cancer (PPC)? Why is it treated like ovarian cancer? #gyncsm
Dee Sparacio @womenofteal
Remember you can let us know you’re here by simply tweeting #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T1: What is Primary Peritoneal Cancer (PPC)? Why is it treated like ovarian cancer? #gyncsm
Shannon Westin @shannonwestin
RT @gyncsm: T1: What is Primary Peritoneal Cancer (PPC)? Why is it treated like ovarian cancer? #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T1: What is Primary Peritoneal Cancer (PPC)? Why is it treated like ovarian cancer? #gyncsm
Jen Burzawa @jburzawa
RT @gyncsm: T1: What is Primary Peritoneal Cancer (PPC)? Why is it treated like ovarian cancer? #gyncsm #gyncsm
Christina Lizaso @btrfly12
T1: The peritoneum is a thin membrane that forms the lining of the abdomen. It covers all of the organs within the abdomen. #gyncsm
Shannon Westin @shannonwestin
T1: PPC arises is in the peritoneum (lining of the abdomen). It responds to a similar combo of surgery and chemo used for ovar ca #gyncsm
Shannon Westin @shannonwestin
RT @btrfly12: T1: The peritoneum is a thin membrane that forms the lining of the abdomen. It covers all of the organs within the abdomen.…
Dee Sparacio @womenofteal
RT @btrfly12: T1: The peritoneum is a thin membrane that forms the lining of the abdomen. It covers all of the organs within the abdomen.…
Christina Lizaso @btrfly12
T1: The peritoneum also acts a conduit for blood, lymphatic vessels and nerves. #gyncsm
Rick Boulay,MD @journeycancer
Primary Peritoneal cancer is Ovarian cancer that starts outside the ovary. (Usually in the omentum within the abdomen) #gyncsm https://t.co/uD7fLey7Cr
Dee Sparacio @womenofteal
RT @ShannonWestin: T1: PPC arises is in the peritoneum (lining of the abdomen). It responds to a similar combo of surgery and chemo used fo…
Sarah Temkin @temkins
RT @ShannonWestin: T1: PPC arises is in the peritoneum (lining of the abdomen). It responds to a similar combo of surgery and chemo used fo…
Christina Lizaso @btrfly12
T1: I've read that PPC, Fallopian Tube Cancer and ovarian cancer appear "identical" under the microscope. #gyncsm
Merry J Markham, MD @drmarkham
RT @ShannonWestin: T1: PPC arises is in the peritoneum (lining of the abdomen). It responds to a similar combo of surgery and chemo used fo…
Sarah Temkin @temkins
#ovariancancer and ppc are very similar biologically https://t.co/Yph3QJTKnb
Dee Sparacio @womenofteal
RT @btrfly12: T1: I've read that PPC, Fallopian Tube Cancer and ovarian cancer appear "identical" under the microscope. #gyncsm
Shannon Westin @shannonwestin
T1: PPC is often diagnosed at stage III/IV but can still be completely cleared in the upfront setting #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: T1: PPC is often diagnosed at stage III/IV but can still be completely cleared in the upfront setting #gyncsm
Kathleen Maxian @kathleenmaxian
#gyncsm T1: Listen in tonight about our sister cancer, #PrimaryPeritonial
Christina Lizaso @btrfly12
T1: During gyn surgery, the pattern of tumor distribution and organ involvement helps indicates the origin of the primary cancer. #gyncsm
Christina Lizaso @btrfly12
RT @KathleenMaxian: #gyncsm T1: Listen in tonight about our sister cancer, #PrimaryPeritonial
Shannon Westin @shannonwestin
RT @btrfly12: T1: During gyn surgery, the pattern of tumor distribution and organ involvement helps indicates the origin of the primary can…
Sarah Temkin @temkins
The two diseases #ovariancancer and PPC behave very similarly #gyncsm https://t.co/Yph3QJC9vD
Jen Burzawa @jburzawa
The histology (cell type) of PPC is same as #ovariancancer and Fallopian tube. #gyncsm
Dee Sparacio @womenofteal
T1 Primary peritoneal cancer was first recognized in 1959 #gyncsm
Shannon Westin @shannonwestin
RT @temkins: The two diseases #ovariancancer and PPC behave very similarly #gyncsm https://t.co/Yph3QJC9vD
Tim Kennedy @timkenn55679925
Very enthusiastic about Dr. Westin here in central TX. https://t.co/qf5ehDuTXy
Rick Boulay,MD @journeycancer
Yup. And genetically the same as well. Also the same proteins are on the cell surfaces. #gyncsm https://t.co/zaQG8zvzDa
Dee Sparacio @womenofteal
RT @jburzawa: The histology (cell type) of PPC is same as #ovariancancer and Fallopian tube. #gyncsm
Behrouz Zand MD @behrouz_zand
Hi, I am a gyn oncologist at @mdandersonnews #gyncsm
Dee Sparacio @womenofteal
RT @journeycancer: Yup. And genetically the same as well. Also the same proteins are on the cell surfaces. #gyncsm https://t.co/zaQG8zvzDa
Nicole D. Fleming MD @nicoleflemingmd
T1: The most common cell type of PPC, serous carcinoma, is also the most common cell type in #ovariancancer #gyncsm
Dee Sparacio @womenofteal
@jburzawa @journeycancer So there is a serous type of PPC? #gyncsm
Christina Lizaso @btrfly12
@Behrouz_Zand @MDAndersonNews Welcome - we're on our first topic, learning about Primary Peritoneal Cancer. #gyncsm
Merry J Markham, MD @drmarkham
RT @nicoleflemingmd: T1: The most common cell type of PPC, serous carcinoma, is also the most common cell type in #ovariancancer #gyncsm
Dee Sparacio @womenofteal
@nicoleflemingmd You answered my question before I hit send. Thanks #gyncsm
Shannon Westin @shannonwestin
RT @nicoleflemingmd: T1: The most common cell type of PPC, serous carcinoma, is also the most common cell type in #ovariancancer #gyncsm
Christina Lizaso @btrfly12
T1: Important fact - a woman can get Primary Peritoneal Cancer even if her ovaries have been removed. #gyncsm
Dee Sparacio @womenofteal
@Behrouz_Zand @MDAndersonNews Welcome! #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T1: Important fact - a woman can get Primary Peritoneal Cancer even if her ovaries have been removed. #gyncsm
Lisa M Guzzardi, RN @lguzzardim
RT @btrfly12: T1: Important fact - a woman can get Primary Peritoneal Cancer even if her ovaries have been removed. #gyncsm
Sarah Temkin @temkins
T1: there have been a lot of molecular and genetic advances since 1959! A lot of PPC was prob unrecognized fallopian tube cancer. #gncsm https://t.co/me7wwUVt9c
Christina Lizaso @btrfly12
T1: PPC most commonly treated like epithelial ovarian cancer w/ surgery and chemo. NCCN guidelines: https://t.co/OnEPhCupdU #gyncsm
Shannon Westin @shannonwestin
RT @btrfly12: T1: PPC most commonly treated like epithelial ovarian cancer w/ surgery and chemo. NCCN guidelines: https://t.co/OnEPhCupdU #…
Dee Sparacio @womenofteal
RT @btrfly12: T1: PPC most commonly treated like epithelial ovarian cancer w/ surgery and chemo. NCCN guidelines: https://t.co/OnEPhCupdU #…
Pam @peasoup09
RT @btrfly12: T1: Important fact - a woman can get Primary Peritoneal Cancer even if her ovaries have been removed. #gyncsm
Lisa M Guzzardi, RN @lguzzardim
Hi #gyncsm ! Joining late here from NY.
Jen Burzawa @jburzawa
RT @nicoleflemingmd T1: The most common cell type of PPC, serous carcinoma, is also the most common cell type in #ovariancancer #gyncsm
Rie Lopez, MPH @rieofletters
RT @gyncsm: See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/TNKgDIdjD4
GYN Cancer | #GYNCSM @gyncsm
Topic 2 (T2:) coming up... https://t.co/TNKgDIdjD4 #gyncsm
Rick Boulay,MD @journeycancer
It's great to have all our MD Anderson colleagues. Are you guys all sitting in the back of a staff meeting?! #gyncsm
Christina Lizaso @btrfly12
@LguzzardiM thanks for being here :) #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T2: Are there risk factors and symptoms of Primary Peritoneal Cancer (PPC)? Is there a known genetic mutation that increases risk? #gyncsm
Shannon Westin @shannonwestin
@btrfly12 Exactly - PPC starts in cells of the peritoneum that are similar to cells of the ovary #gyncsm
Shannon Westin @shannonwestin
RT @gyncsm: T2: Are there risk factors and symptoms of Primary Peritoneal Cancer (PPC)? Is there a known genetic mutation that increases ri…
Rick Boulay,MD @journeycancer
RT @btrfly12: T1: Important fact - a woman can get Primary Peritoneal Cancer even if her ovaries have been removed. #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T2: Are there risk factors and symptoms of Primary Peritoneal Cancer (PPC)? Is there a known genetic mutation that increases ri…
Shannon Westin @shannonwestin
@journeycancer So happy to have all my peeps here! #gyncsm
Dee Sparacio @womenofteal
@LguzzardiM Hi Lisa- So glad you are joining us. Love your Facebook Journal club BRCA Advanced 101-102 #gyncsm
Rick Boulay,MD @journeycancer
RT @btrfly12: T1: PPC most commonly treated like epithelial ovarian cancer w/ surgery and chemo. NCCN guidelines: https://t.co/OnEPhCupdU #…
Dee Sparacio @womenofteal
@journeycancer I was thinking the same thing. #gyncsm
Jen Burzawa @jburzawa
RT @btrfly12: T1: Important fact - a woman can get Primary Peritoneal Cancer even if her ovaries have been removed. #gyncsm
Christina Lizaso @btrfly12
#gyncsm - https://t.co/ElUK6enVkT
Dee Sparacio @womenofteal
RT @ShannonWestin: @btrfly12 Exactly - PPC starts in cells of the peritoneum that are similar to cells of the ovary #gyncsm
Lisa M Guzzardi, RN @lguzzardim
Primary #peritonealcancer in #BRCA carriers after prophylactic bilateral salpingo-oophorectomy #gyncsm https://t.co/3paclaTkV1
Shannon Westin @shannonwestin
RT @LguzzardiM: Primary #peritonealcancer in #BRCA carriers after prophylactic bilateral salpingo-oophorectomy #gyncsm https://t.co/3pacl…
Christina Lizaso @btrfly12
#gyncsm https://t.co/GwJsL7uqVR
Dee Sparacio @womenofteal
T2 Frequency of BRCA mutations the same as #ovca Goodman article #gyncsm
Kathleen Maxian @kathleenmaxian
#gyncsm T2: The symptoms & Risk factors are the same for #PrimaryPeritonial & Ovarian cancer
Nicole D. Fleming MD @nicoleflemingmd
The only way to distinguish PPC vs. #ovariancancer is by path looking at the ovarian surface & stroma to see where cancer arises #gyncsm
Merry J Markham, MD @drmarkham
Very important to remember. https://t.co/pcGgtgzohO
Dee Sparacio @womenofteal
RT @KathleenMaxian: #gyncsm T2: The symptoms & Risk factors are the same for #PrimaryPeritonial & Ovarian cancer
Rick Boulay,MD @journeycancer
RT @LguzzardiM: Primary #peritonealcancer in #BRCA carriers after prophylactic bilateral salpingo-oophorectomy #gyncsm https://t.co/3pacl…
Shannon Westin @shannonwestin
T2: Risk factors for PPC are the same as #ovariancancer - significant exposure to estrogen - early menarche, late menopause #gyncsm
Dee Sparacio @womenofteal
RT @nicoleflemingmd: The only way to distinguish PPC vs. #ovariancancer is by path looking at the ovarian surface & stroma to see where can…
Shannon Westin @shannonwestin
RT @KathleenMaxian: #gyncsm T2: The symptoms & Risk factors are the same for #PrimaryPeritonial & Ovarian cancer
Shannon Westin @shannonwestin
RT @womenofteal: T2 Frequency of BRCA mutations the same as #ovca Goodman article #gyncsm
Mommy's Cancer @mommyscancer
RT @btrfly12: T1: Important fact - a woman can get Primary Peritoneal Cancer even if her ovaries have been removed. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T2: The major risk factor for Primary Peritoneal Cancer is advancing age. #gyncsm
Shannon Westin @shannonwestin
RT @nicoleflemingmd: The only way to distinguish PPC vs. #ovariancancer is by path looking at the ovarian surface & stroma to see where can…
Dee Sparacio @womenofteal
RT @ShannonWestin: T2: Risk factors for PPC are the same as #ovariancancer - significant exposure to estrogen - early menarche, late menopa…
Christina Lizaso @btrfly12
T2: Roughly 10-15% of peritoneal cancers are genetically linked. BRCA1, BRCA2 and Lynch Syndrome carry an increased risk of PPC. #gyncsm
Christina Lizaso @btrfly12
PPC symptoms are more commonly gastrointestinal - abdominal bloating, changes in bowel habits, and an early feeling of fullness. #gyncsm
Lisa M Guzzardi, RN @lguzzardim
Primary peritoneal cancer can be found many yrs after prophylactic salpingo-oophorectomy, and it usually presents at advanced stages #gyncsm
Cancer Hope Network @cancerhopenet
RT @gyncsm: Tonight on #gyncsm we'll discuss two rare cancers: GTD-Gestational trophoblastic disease and Primary Peritoneal Cancer
Christina Lizaso @btrfly12
RT @LguzzardiM: Primary peritoneal cancer can be found many yrs after prophylactic salpingo-oophorectomy, and it usually presents at advanc…
Jen Burzawa @jburzawa
T2: True PPC is thought to be more rare than #ovariancancer #gyncsm
Rick Boulay,MD @journeycancer
And often times it's still difficult. It makes for interesting discussions at tumor boards. #gyncsm https://t.co/eLNmN2dogu
Dee Sparacio @womenofteal
@KathleenMaxian SO the same bloating, freq urination ,pain, feeling full can occur w/ PPC #gyncsm
Shannon Westin @shannonwestin
#BRCA mutation can put pts at risk for PPC - even if the ovaries have been removed! #gyncsm
Rick Boulay,MD @journeycancer
RT @ShannonWestin: T2: Risk factors for PPC are the same as #ovariancancer - significant exposure to estrogen - early menarche, late menopa…
Lisa M Guzzardi, RN @lguzzardim
RT @nicoleflemingmd: The only way to distinguish PPC vs. #ovariancancer is by path looking at the ovarian surface & stroma to see where can…
Shannon Westin @shannonwestin
RT @LguzzardiM: Primary peritoneal cancer can be found many yrs after prophylactic salpingo-oophorectomy, and it usually presents at advanc…
Rick Boulay,MD @journeycancer
RT @btrfly12: T2: Roughly 10-15% of peritoneal cancers are genetically linked. BRCA1, BRCA2 and Lynch Syndrome carry an increased risk of P…
Dee Sparacio @womenofteal
@jburzawa T2 I read a stat that it was 6.7 in 1 million women get PPC #gyncsm
Shannon Westin @shannonwestin
RT @womenofteal: @KathleenMaxian SO the same bloating, freq urination ,pain, feeling full can occur w/ PPC #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: #BRCA mutation can put pts at risk for PPC - even if the ovaries have been removed! #gyncsm
Christina Lizaso @btrfly12
T2: Patient Information on Primary Peritoneal Disease from @gyncancer https://t.co/3yfv1CUsQe #gyncsm
Shannon Westin @shannonwestin
RT @btrfly12: T2: Patient Information on Primary Peritoneal Disease from @gyncancer https://t.co/3yfv1CUsQe #gyncsm
Dee Sparacio @womenofteal
Imp to know RT @womenofteal: @jburzawa T2 I read a stat that it was 6.7 in 1 million women get PPC #gyncsm
Robin Martinez @robinsmrtptient
I'm here but haven't said hi. Having to use plain Twitter tonight because Tweetchat isn't cooperating. #gyncsm
Sarah Temkin @temkins
RT @ShannonWestin: #BRCA mutation can put pts at risk for PPC - even if the ovaries have been removed! #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: #BRCA mutation can put pts at risk for PPC - even if the ovaries have been removed! #gyncsm
Kathleen Maxian @kathleenmaxian
Yes! #gyncsm https://t.co/QMSZh5fIhI
Shannon Westin @shannonwestin
@RobinSmrtPtient Hey Robin! I couldn't get tweetchat to work either - using tweet deck! #gyncsm
Dee Sparacio @womenofteal
@RobinSmrtPtient Hi Robin - I've had issues in the past with tweetchat too #gyncsm
Jen Burzawa @jburzawa
@LguzzardiM T2: Risk of PPC ~ 1-5% in #BRCA carriers who have undergone RR BSO #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Welcome to those joining along. Say "#gyncsm" to say Hi even if you are just here to listen :) Topic 3 (T3:) coming up... #gyncsm
Jillosopher @jillosopher
Hi all. Joining late. Jill, from Connecticut. Dx'ed Jan/17 grade 1, stage 3a endometrioid endometrial ca. #gyncsm
Lisa M Guzzardi, RN @lguzzardim
What should be the PPC surveillance for high risk women after risk reducing surgery #gyncsm?
Rick Boulay,MD @journeycancer
I've seen it quotes that 10/15% of Ovarian cancer is primary peritoneal. (2500 new case/ year in US. https://t.co/HpxvnKjCNA
Robin Martinez @robinsmrtptient
How is PPC usually discovered? #gyncsm
Dee Sparacio @womenofteal
I'm using Tchat.io for the chat and it is working well - so far #gyncsm
Cancer Australia @canceraustralia
Do you know the symptoms of #vulvalcancer? Learn the symptoms here: https://t.co/cYPfQfx8nL #gyncsm https://t.co/nOv3YECkf9
Nicole D. Fleming MD @nicoleflemingmd
T2: Risk of PPC in BRCA positive patients following risk reducing BSO surgery is 1-3% in most studies #gyncsm
Christina Lizaso @btrfly12
T2: Recurrences are common in patients with PPC because most are diagnosed when they already have advanced stages of disease. #gyncsm
Lisa M Guzzardi, RN @lguzzardim
RT @jburzawa: @LguzzardiM T2: Risk of PPC ~ 1-5% in #BRCA carriers who have undergone RR BSO #gyncsm
Dee Sparacio @womenofteal
@jillosopher Good to see you again Jill #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T2: Recurrences are common in patients with PPC because most are diagnosed when they already have advanced stages of disease.…
Shannon Westin @shannonwestin
@LguzzardiM Great question! its tough but we generally see patients every 6 months for screening #gyncsm
Lisa M Guzzardi, RN @lguzzardim
RT @ShannonWestin: #BRCA mutation can put pts at risk for PPC - even if the ovaries have been removed! #gyncsm
Dee Sparacio @womenofteal
Good question RT @LguzzardiM: What should be the PPC surveillance for high risk women after risk reducing surgery #gyncsm? #gyncsm
Kathleen Maxian @kathleenmaxian
RT @nicoleflemingmd: T2: Risk of PPC in BRCA positive patients following risk reducing BSO surgery is 1-3% in most studies #gyncsm
Christina Lizaso @btrfly12
RT @ShannonWestin: #BRCA mutation can put pts at risk for PPC - even if the ovaries have been removed! #gyncsm
Robin Martinez @robinsmrtptient
Thanks, Dee, I couldn't remember Tchat.io! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T3: What is Gestational trophoblastic disease (GTDisease)? What types of GTDisease are there? Are they all malignant? #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T3: What is Gestational trophoblastic disease (GTDisease)? What types of GTDisease are there? Are they all malignant? #gyncsm
Dee Sparacio @womenofteal
#gyncsm https://t.co/bvhcdf9bEf
Shannon Westin @shannonwestin
@RobinSmrtPtient Very similar to #ovariancancer - evaluation of concerning symptoms with imaging (CT/ultrasound) #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: @RobinSmrtPtient Very similar to #ovariancancer - evaluation of concerning symptoms with imaging (CT/ultrasound) #gyncsm
Shannon Westin @shannonwestin
RT @gyncsm: T3: What is Gestational trophoblastic disease (GTDisease)? What types of GTDisease are there? Are they all malignant? #gyncsm
Rick Boulay,MD @journeycancer
RT @nicoleflemingmd: T2: Risk of PPC in BRCA positive patients following risk reducing BSO surgery is 1-3% in most studies #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T3: What is Gestational trophoblastic disease (GTDisease)? What types of GTDisease are there? Are they all malignant? #gyncsm
Jen Burzawa @jburzawa
T2 @Lguzzardi Like #ovariancancer, no effective screening for PPC #gyncsm
Rick Boulay,MD @journeycancer
RT @LguzzardiM: What should be the PPC surveillance for high risk women after risk reducing surgery #gyncsm?
Shannon Westin @shannonwestin
RT @jburzawa: T2 @Lguzzardi Like #ovariancancer, no effective screening for PPC #gyncsm
Christina Lizaso @btrfly12
T3: GTDisease is a group of rare diseases in which abnormal trophoblast cells grow inside the uterus after conception. #gyncsm
Dee Sparacio @womenofteal
T3 Normal cells of the placenta, called trophoblast cells, change and form a mass. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T3: GTDisease is a group of rare diseases in which abnormal trophoblast cells grow inside the uterus after conception. #gyncsm
Katie Smith @katielizsmith
T3: I'm a 12 year GTD survivor - happy to answer any questions you may have from the patient point of view - #gyncsm
Shannon Westin @shannonwestin
RT @womenofteal: T3 Normal cells of the placenta, called trophoblast cells, change and form a mass. #gyncsm
Lisa M Guzzardi, RN @lguzzardim
@ShannonWestin What type of screening are you doing? There is no standard of care. Extremely overwhelming & most asked #journalclub question. #gyncsm
Shannon Westin @shannonwestin
@katielizsmith Congratulations!! #gyncsm
Nicole D. Fleming MD @nicoleflemingmd
T2: Because risk PPC after BSO in #BRCA positive only 1-3% routine screening has not been generally recommended #gyncsm
Lisa M Guzzardi, RN @lguzzardim
RT @jburzawa: T2 @Lguzzardi Like #ovariancancer, no effective screening for PPC #gyncsm
Jorge Hoegl @megahoegl
RT @nicoleflemingmd: T2: Because risk PPC after BSO in #BRCA positive only 1-3% routine screening has not been generally recommended #gyncsm
Christina Lizaso @btrfly12
Most GTD is not cancer and does not spread, but some types become cancer and spread to nearby tissues or distant parts of the body. #gyncsm
Kathleen Maxian @kathleenmaxian
For #BRCA positive women at high risk that 1 to 3% is much better than 40% chance of #ovariancancer #gyncsm https://t.co/BkG5lMluh7
CascadiaChat @cascadiachat
@ShannonWestin Is there a higher risk for either the millions of DES exposed Mothers or their daughters #gyncsm or does anyone track it that cohort?
Shannon Westin @shannonwestin
@LguzzardiM We follow just like #ovariancancer - looking for symptoms of concern and follow CA125 levels. No routine imaging. #gyncsm
Tim Kennedy @timkenn55679925
Shannon and Dr. Westin "get it" when it comes to healthcare. A forward thinking candidate Texas patients deserve. https://t.co/yxBrGzMVPS
Jen Burzawa @jburzawa
RT @btrfly12: T3: GTDisease is a group of rare diseases in which abnormal trophoblast cells grow inside the uterus after conception. #gyncsm
Rick Boulay,MD @journeycancer
Because the risk is low (2% per lifetime) and there are no proven techniques, there is no screening recommended. #gyncsm https://t.co/upFOTbXxJR
Dee Sparacio @womenofteal
T3 I read there are 4 types of cancerous GTD - first two #gyncsm
Shannon Westin @shannonwestin
Absolutely - huge risk reduction but patients and providers must stay vigilent! #gyncsm https://t.co/VdbgvZBv52
Shannon Westin @shannonwestin
RT @TimKenn55679925: Shannon and Dr. Westin "get it" when it comes to healthcare. A forward thinking candidate Texas patients deserve. http…
Behrouz Zand MD @behrouz_zand
a group of diseases from abnormal proliferation of trophoblasts-- these are cells from the placenta https://t.co/ah6EXJNymC
Dee Sparacio @womenofteal
T3 Gestational Trophoblastic Neoplasia (GTN) – invasive mole Choriocarcinoma ( 5%) all GTN #gyncsm
Christina Lizaso @btrfly12
@katielizsmith Have you met/connected with others with GTD? What advice would you share w/ the newly diagnosed? #gyncsm
Merry J Markham, MD @drmarkham
RT @journeycancer: Because the risk is low (2% per lifetime) and there are no proven techniques, there is no screening recommended.…
Katie Smith @katielizsmith
As a GTD survivor who did not have chemo/radiation, are there any other gyn cancers I should be aware of/at risk for? #gyncsm
Linda Halsey @lindahalsey2
@gyncsm #gyncsm
Dee Sparacio @womenofteal
@katielizsmith So glad you are here tonight to offer that perspective. #gyncsm
Christina Lizaso @btrfly12
T3: Gestational Trophoblastic Disease Treatment (PDQ®)–Patient Version via @theNCI https://t.co/kmzQUm3yxf #gyncsm
Christina Lizaso @btrfly12
@LindaHalsey2 @gyncsm great to have you join us again :) #gyncsm
Lisa M Guzzardi, RN @lguzzardim
Please join us @ShannonWestin : #BRCA Advanced 101 & 102 Journal Club @facebook . All #gyncsm are cordially invited https://t.co/xQXpsYcxzj
Jen Burzawa @jburzawa
@womenofteal T3: Correct- 4 types of GTD #gyncsm
Dee Sparacio @womenofteal
T3 first 2: Gestational Trophoblastic Neoplasia (GTN) – invasive mole, Choriocarcinoma ( 5%) all GTN #gyncsm
Katie Smith @katielizsmith
@btrfly12 Actually, no I haven't. I feel very alone and constantly have to explain to ppl what I had. #gyncsm
Rick Boulay,MD @journeycancer
Molar pregnancy, persistent mole, invasive mole choriocarcinoma .. most need only a D and C. Some need chemo. #gyncsm https://t.co/jCCQs5pdBQ
Lisa M Guzzardi, RN @lguzzardim
RT @ShannonWestin: @LguzzardiM We follow just like #ovariancancer - looking for symptoms of concern and follow CA125 levels. No routine ima…
Christina Lizaso @btrfly12
T3: Patient Information on Gestational Trophoblastic Disease from @gyncancer https://t.co/Q97cqPMcl6 #gyncsm
Linda Halsey @lindahalsey2
@btrfly12 @gyncsm #gyncsm THANK YOU
Shannon Westin @shannonwestin
RT @journeycancer: Molar pregnancy, persistent mole, invasive mole choriocarcinoma .. most need only a D and C. Some need chemo.…
Enlightening Results @gracecordovano
RT @journeycancer: And often times it's still difficult. It makes for interesting discussions at tumor boards. #gyncsm https://t.co/eLNmN2d…
Eden Lake @edenlake
RT @btrfly12: PPC symptoms are more commonly gastrointestinal - abdominal bloating, changes in bowel habits, and an early feeling of fullne…
Christina Lizaso @btrfly12
@katielizsmith rare disease can be especially isolating. we all want to feel that we aren't alone in this. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Topic 4 (T4:) coming up... https://t.co/TNKgDHVIeu #gyncsm
Robin Martinez @robinsmrtptient
@CascadiaChat, I have often wondered about DES. It was such a "wonder drug." My sister had it just for menstrual problems. #gyncsm
Dee Sparacio @womenofteal
T3 first 2 types Gestational Trophoblastic Neoplasia (GTN) ,Choriocarcinoma, #gyncsm
Jason Westin, MD @drwestinfortx07
@TimKenn55679925 Thanks Tim. @ShannonWestin is also a Dr. Westin - an expert in Gyn Cancers. She's all in for my campaign, but right now is chatting #gyncsm
Dee Sparacio @womenofteal
T3 last two types Placental-site trophoblastic tumor (PSTT), Epithelioid trophoblastic tumor (ETT #gyncsm
Shannon Westin @shannonwestin
RT @DrWestinForTX07: @TimKenn55679925 Thanks Tim. @ShannonWestin is also a Dr. Westin - an expert in Gyn Cancers. She's all in for my ca…
Dee Sparacio @womenofteal
RT @btrfly12: @katielizsmith rare disease can be especially isolating. we all want to feel that we aren't alone in this. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T3: Patient Information on Gestational Trophoblastic Disease from @gyncancer https://t.co/Q97cqPMcl6 #gyncsm
Shannon Westin @shannonwestin
RT @btrfly12: T3: Patient Information on Gestational Trophoblastic Disease from @gyncancer https://t.co/Q97cqPMcl6 #gyncsm
Ruth Ann Crystal, MD @catchthebaby
T3 #gyncsm GTD https://t.co/SPoVPWHh0y GTD: -Hydatidiform -Invasive Mole -Choriocarcinoma -Placental trophoblastic tumor -Epithelioid
Dee Sparacio @womenofteal
RT @CatchTheBaby: T3 #gyncsm GTD https://t.co/SPoVPWHh0y GTD: -Hydatidiform -Invasive Mole -Choriocarcinoma -Placental trophoblastic tumor…
Katie Smith @katielizsmith
@womenofteal I had PSTT #gyncsm
Robin Martinez @robinsmrtptient
@women of teal, we ask patients to learn the proper name of their cancer, and now there are cancer names hardly anyone recognizes! #gyncsm
Shannon Westin @shannonwestin
@katielizsmith @btrfly12 May be cool to create a social media group - there is power in numbers!!! #gyncsm
Christina Lizaso @btrfly12
@katielizsmith do you know ur GTD sub-type? (w/cancer just when you get ahold of 1 thing, u find out that there are subs & sub-subs) #gyncsm
Rick Boulay,MD @journeycancer
RT @btrfly12: T3: Gestational Trophoblastic Disease Treatment (PDQ®)–Patient Version via @theNCI https://t.co/kmzQUm3yxf #gyncsm
Dee Sparacio @womenofteal
@RobinSmrtPtient You are right - and they are very rare. #gyncsm
Rick Boulay,MD @journeycancer
RT @LguzzardiM: Please join us @ShannonWestin : #BRCA Advanced 101 & 102 Journal Club @facebook . All #gyncsm are cordially invited https:…
Rick Boulay,MD @journeycancer
RT @btrfly12: T3: Patient Information on Gestational Trophoblastic Disease from @gyncancer https://t.co/Q97cqPMcl6 #gyncsm
Shannon Westin @shannonwestin
RT @btrfly12: @katielizsmith do you know ur GTD sub-type? (w/cancer just when you get ahold of 1 thing, u find out that there are subs & su…
GYN Cancer | #GYNCSM @gyncsm
T4: What are the risk factors and other important things to know for GTDisease? Is there a known genetic mutation that raises risk? #gyncsm
Shannon Westin @shannonwestin
RT @gyncsm: T4: What are the risk factors and other important things to know for GTDisease? Is there a known genetic mutation that raises r…
Christina Lizaso @btrfly12
RT @gyncsm: T4: What are the risk factors and other important things to know for GTDisease? Is there a known genetic mutation that raises r…
Jen Burzawa @jburzawa
SM can be great for rare cancer support RT @btrfly12: @katielizsmith Rare diseases can be especially isolating. #gyncsm
Kathleen Maxian @kathleenmaxian
Thank you @btrfly12 ! Important info on #GTD Gestational Trophoblastic Disease on #gyncsm @GYNCancer https://t.co/JfC0vLKIY1
Nicole D. Fleming MD @nicoleflemingmd
T4: Invasive GTN characterized into high risk and low risk subgroups which determines adjuvant chemotherapy #gyncsm
Shannon Westin @shannonwestin
RT @jburzawa: SM can be great for rare cancer support RT @btrfly12: @katielizsmith Rare diseases can be especially isolating. #gyncsm
Christina Lizaso @btrfly12
Main GTDisease Risk: Age and previous molar pregnancy. Symptoms include abnormal vaginal bleeding and a larger than normal uterus. #gyncsm
Dee Sparacio @womenofteal
RT @nicoleflemingmd: T4: Invasive GTN characterized into high risk and low risk subgroups which determines adjuvant chemotherapy #gyncsm
Christina Lizaso @btrfly12
T4: There's not known genetic mutation related to GTDisease. A family history of molar pregnancy has been found in rare cases. #gyncsm
Shannon Westin @shannonwestin
T4: I am unaware of a genetic predisposition to GTD - majority are just "bad luck!" #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: Main GTDisease Risk: Age and previous molar pregnancy. Symptoms include abnormal vaginal bleeding and a larger than normal ut…
Jen Burzawa @jburzawa
T3: Ethnicity (Asian) also plays a role in GTD #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T4: There's not known genetic mutation related to GTDisease. A family history of molar pregnancy has been found in rare cases…
Christina Lizaso @btrfly12
RT @jburzawa: T3: Ethnicity (Asian) also plays a role in GTD #gyncsm
Dee Sparacio @womenofteal
RT @jburzawa: T3: Ethnicity (Asian) also plays a role in GTD #gyncsm
Shannon Westin @shannonwestin
RT @btrfly12: T4: There's not known genetic mutation related to GTDisease. A family history of molar pregnancy has been found in rare cases…
Katie Smith @katielizsmith
@btrfly12 I also had abnormal discharge that was a symptom as well. #gyncsm
Christina Lizaso @btrfly12
T4: One source mentioned that GTDisease sometimes causes an overactive thyroid. #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: T4: I am unaware of a genetic predisposition to GTD - majority are just "bad luck!" #gyncsm
Christina Lizaso @btrfly12
RT @katielizsmith: @btrfly12 I also had abnormal discharge that was a symptom as well. #gyncsm
Nicole D. Fleming MD @nicoleflemingmd
T4: Risks of invasive GTN include previous molar pregnancy, extremes of age. No known hereditary risks. #gyncsm
Kathleen Maxian @kathleenmaxian
#gyncsm T4: What is Molar Pregnancy?
Shannon Westin @shannonwestin
RT @nicoleflemingmd: T4: Risks of invasive GTN include previous molar pregnancy, extremes of age. No known hereditary risks. #gyncsm
Monty Nishimura @montynishimura
RT @btrfly12: Main GTDisease Risk: Age and previous molar pregnancy. Symptoms include abnormal vaginal bleeding and a larger than normal ut…
Ruth Ann Crystal, MD @catchthebaby
T1- Interesting fact, men can also get Primary Peritoneal Cancer (PPC). Often they are treated by Gyn Oncologists. #gyncsm https://t.co/eFuAOuyvaN
Behrouz Zand MD @behrouz_zand
Important to know: About 1/2 from molar pregnancies, 1/4 from miscarriages or ectopic and 1/4 from normal or preterm pregnancies #gyncsm https://t.co/vySu1jpXUI
Christina Lizaso @btrfly12
T4: GTD prognosis is generally favorable, though of course is impacted by several factors. #gyncsm
Shannon Westin @shannonwestin
RT @Behrouz_Zand: Important to know: About 1/2 from molar pregnancies, 1/4 from miscarriages or ectopic and 1/4 from normal or prete…
Christina Lizaso @btrfly12
T4: GTDisease treatments include surgery (removing tumor only or hysterectomy), chemo and radiation. #gyncsm
Rick Boulay,MD @journeycancer
Older age, previous molar pregnancy, #gyncsm https://t.co/er8Y9fBVvp
Dee Sparacio @womenofteal
@KathleenMaxian An early pregnancy.There usually is no fetus and the placental elements continue to grow into the wall of the uterus #gyncsm
Robin Martinez @robinsmrtptient
T4: @btrfly12, do all forms of GTD have a chance of causing overactive thyroid? Or mostly cancers, or something else? #gyncsm
Rick Boulay,MD @journeycancer
RT @KathleenMaxian: Thank you @btrfly12 ! Important info on #GTD Gestational Trophoblastic Disease on #gyncsm @GYNCancer https://t.co/JfC0v…
BUY FOLLO₩ERS :zqu @almetabeiersch1
RT @btrfly12: Main GTDisease Risk: Age and previous molar pregnancy. Symptoms include abnormal vaginal bleeding and a larger than normal ut…
Katie Smith @katielizsmith
@jburzawa That's what I had heard as well. My geneology makeup is Irish/English/Eastern European, which made me extra rare #gyncsm
Christina Lizaso @btrfly12
T4: Most women with GTDisease are now diagnosed early because of the use of blood tests and ultrasound early in pregnancy. #gyncsm
Dr Elin @dr_elin_raymond
RT @CatchTheBaby: T1- Interesting fact, men can also get Primary Peritoneal Cancer (PPC). Often they are treated by Gyn Oncologists.…
Shannon Westin @shannonwestin
RT @btrfly12: T4: Most women with GTDisease are now diagnosed early because of the use of blood tests and ultrasound early in pregnancy. #…
Dee Sparacio @womenofteal
RT @btrfly12: T4: GTDisease treatments include surgery (removing tumor only or hysterectomy), chemo and radiation. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T4: Most women with GTDisease are now diagnosed early because of the use of blood tests and ultrasound early in pregnancy. #…
Christina Lizaso @btrfly12
T4: The risk of recurrence for GTDisease overall is low. #gyncsm
Rick Boulay,MD @journeycancer
RT @Behrouz_Zand: Important to know: About 1/2 from molar pregnancies, 1/4 from miscarriages or ectopic and 1/4 from normal or prete…
Katie Smith @katielizsmith
@Behrouz_Zand That's interesting! I was diagnosed 1 year after giving birth to my son. B/C of elevated HCG levels, orig thought I had miscarriage #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Final Topic (T5:) coming up... #gyncsm
Jen Burzawa @jburzawa
@katielizsmith Congratulations on being a survivor! Rare=special :) #gyncsm
Behrouz Zand MD @behrouz_zand
Also important to get chest CT. About 40% will have micrometastases to the lungs that were negative on chest x-ray #gyncsm https://t.co/vySu1jpXUI
Dee Sparacio @womenofteal
RT @journeycancer: Older age, previous molar pregnancy, #gyncsm https://t.co/er8Y9fBVvp
Christina Lizaso @btrfly12
@RobinSmrtPtient Here's the source - under section that starts "Signs of GTD include..." https://t.co/kmzQUml9VP #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T5: Are there any special support services for these two rare cancers (PPC and GTD)? Where can people learn more? #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: @RobinSmrtPtient Here's the source - under section that starts "Signs of GTD include..." https://t.co/kmzQUml9VP #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T5: Are there any special support services for these two rare cancers (PPC and GTD)? Where can people learn more? #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T5: Are there any special support services for these two rare cancers (PPC and GTD)? Where can people learn more? #gyncsm
Shannon Westin @shannonwestin
RT @gyncsm: T5: Are there any special support services for these two rare cancers (PPC and GTD)? Where can people learn more? #gyncsm
Kathleen Maxian @kathleenmaxian
Thanks Dee! @womenofteal Learning here at #gyncsm Tweet Chat https://t.co/5XKTKTtvmm
Ruth Ann Crystal, MD @catchthebaby
@ShannonWestin @katielizsmith @btrfly12 You may want to contact @smart_patients which has online health communities. It was started by @gfry and @rzeiger. #gyncsm
Shannon Westin @shannonwestin
T5: The Foundation for Women's Cancer @GYNCancer is a great resource for all #gyncancer #gyncsm
Dee Sparacio @womenofteal
T4 Patient Information on Gestational Trophoblastic Disease from @gyncancer https://t.co/9FvnNVJOiB #gyncsm
Christina Lizaso @btrfly12
T5: Foundation for Women's Cancer @gyncancer Primary Peritoneal Cancer Brochure - https://t.co/4hmxSyyuNU #gyncsm
Shannon Westin @shannonwestin
RT @CatchTheBaby: @ShannonWestin @katielizsmith @btrfly12 You may want to contact @smart_patients which has online health communities…
Monty Nishimura @montynishimura
RT @btrfly12: T4: Most women with GTDisease are now diagnosed early because of the use of blood tests and ultrasound early in pregnancy. #…
Katie Smith @katielizsmith
@CancerHopeNet @womenofteal @ShannonWestin @btrfly12 I definitely will! Thank you so much @CancerHopeNet #gyncsm
Ruth Ann Crystal, MD @catchthebaby
RT @btrfly12: T4: Most women with GTDisease are now diagnosed early because of the use of blood tests and ultrasound early in pregnancy. #…
Christina Lizaso @btrfly12
T5: Martha C. Kinnecom Primary Peritoneal Cancer Foundation https://t.co/tRzXy1W1x0 #gyncsm
Dee Sparacio @womenofteal
@KathleenMaxian I learned a lot about PPC and GTD while prepping for this chat #gyncsm
Jen Burzawa @jburzawa
T5: There are a couple of centers nationally that focus on GTD https://t.co/84RHfztpmc #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T5: Martha C. Kinnecom Primary Peritoneal Cancer Foundation https://t.co/tRzXy1W1x0 #gyncsm
Robin Martinez @robinsmrtptient
Thanks, Christina! #gyncsm
Shannon Westin @shannonwestin
RT @jburzawa: T5: There are a couple of centers nationally that focus on GTD https://t.co/84RHfztpmc #gyncsm
Dee Sparacio @womenofteal
RT @jburzawa: T5: There are a couple of centers nationally that focus on GTD https://t.co/84RHfztpmc #gyncsm
Christina Lizaso @btrfly12
RT @jburzawa: T5: There are a couple of centers nationally that focus on GTD https://t.co/84RHfztpmc #gyncsm
Shannon Westin @shannonwestin
RT @btrfly12: T5: Martha C. Kinnecom Primary Peritoneal Cancer Foundation https://t.co/tRzXy1W1x0 #gyncsm
Christina Lizaso @btrfly12
T5: Gestational Trophoblastic Disease via @CancerDotNet https://t.co/QHDUPIT9qZ #gyncsm
Shannon Westin @shannonwestin
RT @btrfly12: T5: Foundation for Women's Cancer @gyncancer Primary Peritoneal Cancer Brochure - https://t.co/4hmxSyyuNU #gyncsm
Christina Lizaso @btrfly12
T5: Gestational Trophoblastic Disease: Questions to Ask the Doctor via @CancerDotNet https://t.co/oYwWqwQoHS #gyncsm
Katie Smith @katielizsmith
I will say that @GYNCancer was a great resource for me when I was going through testing. SO thankful for them!! #gyncsm
Shannon Westin @shannonwestin
RT @btrfly12: T5: Gestational Trophoblastic Disease: Questions to Ask the Doctor via @CancerDotNet https://t.co/oYwWqwQoHS #gyncsm
Christina Lizaso @btrfly12
RT @katielizsmith: I will say that @GYNCancer was a great resource for me when I was going through testing. SO thankful for them!! #gyncsm
Rick Boulay,MD @journeycancer
RT @btrfly12: T5: Martha C. Kinnecom Primary Peritoneal Cancer Foundation https://t.co/tRzXy1W1x0 #gyncsm
Rick Boulay,MD @journeycancer
RT @btrfly12: T5: Foundation for Women's Cancer @gyncancer Primary Peritoneal Cancer Brochure - https://t.co/4hmxSyyuNU #gyncsm
Shannon Westin @shannonwestin
RT @Behrouz_Zand: Also important to get chest CT. About 40% will have micrometastases to the lungs that were negative on chest x-ray…
Christina Lizaso @btrfly12
T5: #RareDisease resources include: @GlobalGenes @RareAdvocates @RareDiseases @rarediseaseday #Dazzle4Rare #gyncsm
Dee Sparacio @womenofteal
T5 PPC from Macmillan UK https://t.co/e1IeWoF40I #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T5: #RareDisease resources include: @GlobalGenes @RareAdvocates @RareDiseases @rarediseaseday #Dazzle4Rare #gyncsm
Jen Burzawa @jburzawa
T5: Important to receive care for rare cancers with a specialist, such as a gynecologic oncologist. #gyncsm
kathleen c @emeraidkatnj
RT @gyncsm: T3: What is Gestational trophoblastic disease (GTDisease)? What types of GTDisease are there? Are they all malignant? #gyncsm
Christina Lizaso @btrfly12
RT @jburzawa: T5: Important to receive care for rare cancers with a specialist, such as a gynecologic oncologist. #gyncsm
Dee Sparacio @womenofteal
T5 PPC information Medscape https://t.co/YiXK47qq1K #gyncsm
Rick Boulay,MD @journeycancer
RT @jburzawa: T5: Important to receive care for rare cancers with a specialist, such as a gynecologic oncologist. #gyncsm
Shannon Westin @shannonwestin
RT @jburzawa: T5: Important to receive care for rare cancers with a specialist, such as a gynecologic oncologist. #gyncsm
Dee Sparacio @womenofteal
Yes very imp! RT @jburzawa: T5: Important to receive care for rare cancers with a specialist, such as a gynecologic oncologist. #gyncsm
Monty Nishimura @montynishimura
RT @btrfly12: T5: Gestational Trophoblastic Disease via @CancerDotNet https://t.co/QHDUPIT9qZ #gyncsm
Shannon Westin @shannonwestin
RT @womenofteal: T5 PPC information Medscape https://t.co/YiXK47qq1K #gyncsm
Christina Lizaso @btrfly12
#gyncsm advice to newly diagnosed: https://t.co/oNARuDqHhP
Sharer UsSharing @sharerussharing
RT @btrfly12: T5: Gestational Trophoblastic Disease via @CancerDotNet https://t.co/QHDUPIT9qZ #gyncsm
Jen Burzawa @jburzawa
T5: Check out CART-WHEEL for rare cancers https://t.co/ITvdYgUdQd #gyncsm
Lisa M Guzzardi, RN @lguzzardim
RT @jburzawa: T5: Important to receive care for rare cancers with a specialist, such as a gynecologic oncologist. #gyncsm
Christina Lizaso @btrfly12
#gyncsm https://t.co/JIO8z6VTI0
GYN Cancer | #GYNCSM @gyncsm
Time to start sharing our closing thoughts. Start you tweet w/ “TIL:” standing for Today I Learned [ I know I learned a lot! ] #gyncsm
Dee Sparacio @womenofteal
RT @jburzawa: T5: Check out CART-WHEEL for rare cancers https://t.co/ITvdYgUdQd #gyncsm
Sharer UsSharing @sharerussharing
RT @btrfly12: T4: Most women with GTDisease are now diagnosed early because of the use of blood tests and ultrasound early in pregnancy. #…
Shannon Westin @shannonwestin
RT @jburzawa: T5: Check out CART-WHEEL for rare cancers https://t.co/ITvdYgUdQd #gyncsm
GYN Cancer | #GYNCSM @gyncsm
RT @womenofteal: Yes very imp! RT @jburzawa: T5: Important to receive care for rare cancers with a specialist, such as a gynecologic oncolo…
Rick Boulay,MD @journeycancer
RT @btrfly12: #gyncsm advice to newly diagnosed: https://t.co/oNARuDqHhP
Dee Sparacio @womenofteal
@gyncsm Time sure flew by tonight. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
RT @jburzawa: T5: There are a couple of centers nationally that focus on GTD https://t.co/84RHfztpmc #gyncsm
Christina Lizaso @btrfly12
#gyncsm #patientchat #ptexp https://t.co/7CGsAQzNvQ
Katie Smith @katielizsmith
TIL (1) I'm not alone in being a GTD/PSTT survivor and (2) this is a great group of people who care about women like me. Thank you! #gyncsm
Linda Halsey @lindahalsey2
@gyncsm "TIL"#gyncsm this was very informative will read articles in dept
Glenn Lader @glennieard
RT @btrfly12: PPC symptoms are more commonly gastrointestinal - abdominal bloating, changes in bowel habits, and an early feeling of fullne…
Behrouz Zand MD @behrouz_zand
#gyncsm https://t.co/UlZBWdAQ23
Jen Burzawa @jburzawa
T5: There are some support groups on FB for rare tumors https://t.co/kIHjhEg3cB #gyncsm
Christina Lizaso @btrfly12
#gyncsm https://t.co/CuZWcGnVDV
Shannon Westin @shannonwestin
@CatchTheBaby @StanfordMed Will do!! #gyncsm
Dee Sparacio @womenofteal
TIL that women with PPC and GTD are in need of support and information #gyncsm
Rick Boulay,MD @journeycancer
RT @katielizsmith: TIL (1) I'm not alone in being a GTD/PSTT survivor and (2) this is a great group of people who care about women like me.…
Shannon Westin @shannonwestin
RT @jburzawa: T5: There are some support groups on FB for rare tumors https://t.co/kIHjhEg3cB #gyncsm
Christina Lizaso @btrfly12
Yes, Dee and I are there on @smart_patients . We can ask if anyone is GTD. #gyncsm https://t.co/SKmmqtYjB8
Rick Boulay,MD @journeycancer
You are not alone Katie. #gyncsm https://t.co/DdNIVbtvQf
Robin Martinez @robinsmrtptient
@jburzawa @Katielizsmith https://t.co/cYXfpPjBEJ helps people with rare cancers connect with others in similar situations. #gyncsm
Math Mountains @e_nvgt
@katielizsmith Good evening! Your fav. point of view maybe "#gyncsm" analyized by this math robot. Good night :) Twitter Awesome! https://t.co/xnXcriPkgD
Shannon Westin @shannonwestin
TIL - no one is alone! Get involved in a rare tumor group to connect with other pts that have PPC or GTD! #gyncsm
Rick Boulay,MD @journeycancer
RT @btrfly12: Yes, Dee and I are there on @smart_patients . We can ask if anyone is GTD. #gyncsm https://t.co/SKmmqtYjB8
Shannon Westin @shannonwestin
RT @RobinSmrtPtient: @jburzawa @Katielizsmith https://t.co/cYXfpPjBEJ helps people with rare cancers connect with others in similar situati…
Rick Boulay,MD @journeycancer
RT @RobinSmrtPtient: @jburzawa @Katielizsmith https://t.co/cYXfpPjBEJ helps people with rare cancers connect with others in similar situati…
Lisa M Guzzardi, RN @lguzzardim
Peritoneal Cancer Clinical Research Trials #gyncsm @CenterWatch https://t.co/akcXPRo5QF
Christina Lizaso @btrfly12
I'm not big on FB groups but was able to connect w/ others with my genetic mutation in one #gyncsm
Dee Sparacio @womenofteal
RT @LguzzardiM: Peritoneal Cancer Clinical Research Trials #gyncsm @CenterWatch https://t.co/akcXPRo5QF
Erin Gilmer @gilmerhealthlaw
Chats across disease communities. We can learn from eachother. #hcldr, #bcsm, #lcsm, #gyncsm, #irishmed, #hitsm - the more the better #dsma https://t.co/0U9k1GQ97t
Rick Boulay,MD @journeycancer
TIL. Rare tumors are not rare to those specialists who treat them. #gyncsm https://t.co/3F6Bfn5pQL
Karen Lazarovitz @karenbrcamtl
RT @LguzzardiM: @levinemd @NYULMC Weighs in on #PARP Inhibitor Advances in #OvarianCancer #gyncsm #hereditarycancernews @OncLive https:/…
Kathleen Maxian @kathleenmaxian
We are here @katielizsmith #gyncsm You Are NOT Alone! ♡♡ https://t.co/75dbTpXKDF
Dee Sparacio @womenofteal
RT @jburzawa: T5: There are some support groups on FB for rare tumors https://t.co/kIHjhEg3cB #gyncsm
GYN Cancer | #GYNCSM @gyncsm
#gyncsm is joining the #Dazzle4Rare campaign August 13-19. Learn more about rare diseases and share your own story. https://t.co/mEhw7DgL2H https://t.co/DoRFYReSx3
Jen Burzawa @jburzawa
RT @shannonwestin: TIL - no one is alone! Get involved in a rare tumor group to connect with other pts that have PPC or GTD! #gyncsm
Shannon Westin @shannonwestin
RT @gyncsm: #gyncsm is joining the #Dazzle4Rare campaign August 13-19. Learn more about rare diseases and share your own story.…
Rick Boulay,MD @journeycancer
RT @katielizsmith: TIL (1) I'm not alone in being a GTD/PSTT survivor and (2) this is a great group of people who care about women like me.…
Karen Lazarovitz @karenbrcamtl
RT @LguzzardiM: Peritoneal Cancer Clinical Research Trials #gyncsm @CenterWatch https://t.co/akcXPRo5QF
GYN Cancer | #GYNCSM @gyncsm
RT @LguzzardiM: Peritoneal Cancer Clinical Research Trials #gyncsm @CenterWatch https://t.co/akcXPRo5QF
Dee Sparacio @womenofteal
@RobinSmrtPtient @jburzawa @katielizsmith Katie - Feel free to sign up through https://t.co/CwNPWNakVo #gyncsm
Karen Lazarovitz @karenbrcamtl
RT @jburzawa: T5: Important to receive care for rare cancers with a specialist, such as a gynecologic oncologist. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Thanks all for today's https://t.co/ItvgTGBiIz #gyncsm chat: Wed Sept 13th A balanced life - advocacy, survivorship, new normal
GYN Cancer | #GYNCSM @gyncsm
Thanks all for today's conversation. Next #gyncsm chat: Wed Sept 13th A balanced life - advocacy, survivorship, new normal
Dee Sparacio @womenofteal
Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @DrMarkham @journeycancer @DrBeckerSchutte
Dee Sparacio @womenofteal
RT @gyncsm: Thanks all for today's conversation. Next #gyncsm chat: Wed Sept 13th A balanced life - advocacy, survivorship, new normal
Rick Boulay,MD @journeycancer
RT @GilmerHealthLaw: Chats across disease communities. We can learn from eachother. #hcldr, #bcsm, #lcsm, #gyncsm, #irishmed, #hitsm -…
Lisa M Guzzardi, RN @lguzzardim
Primary Peritoneal Cancer Treatment Protocols @sloan_kettering #gyncsm Via @Medscape https://t.co/7uoN9VYgom
Shannon Westin @shannonwestin
@womenofteal @btrfly12 @DrMarkham @journeycancer @DrBeckerSchutte Thank you Dee and Christina! You guys rock!1 #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats.
Shannon Westin @shannonwestin
RT @LguzzardiM: Primary Peritoneal Cancer Treatment Protocols @sloan_kettering #gyncsm Via @Medscape https://t.co/7uoN9VYgom
Rick Boulay,MD @journeycancer
RT @gyncsm: #gyncsm is joining the #Dazzle4Rare campaign August 13-19. Learn more about rare diseases and share your own story.…
Shannon Westin @shannonwestin
RT @gyncsm: Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats.
Rick Boulay,MD @journeycancer
RT @gyncsm: Thanks all for today's conversation. Next #gyncsm chat: Wed Sept 13th A balanced life - advocacy, survivorship, new normal
GYN Cancer | #GYNCSM @gyncsm
Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm
Rick Boulay,MD @journeycancer
Glad to be here. Thanks Dee and Christina for moderating. #gyncsm https://t.co/nOTBYBxxdn
GYN Cancer | #GYNCSM @gyncsm
So grateful to all the health care professionals for sharing their knowledge tonight! #gyncsm
Dee Sparacio @womenofteal
Remember to check https://t.co/Df2f7OBZUD for a transcript of the chat and resources #gyncsm
Nicole D. Fleming MD @nicoleflemingmd
RT @gyncsm: Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Also grateful for all the patients and advocates! We are stronger together. #gyncsm
Laura R. Pearson @drriverspearson
RT @womenofteal: RT @ShannonWestin: #BRCA mutation can put pts at risk for PPC - even if the ovaries have been removed! #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm
Karen Lazarovitz @karenbrcamtl
RT @LguzzardiM: Primary Peritoneal Cancer Treatment Protocols @sloan_kettering #gyncsm Via @Medscape https://t.co/7uoN9VYgom
Rick Boulay,MD @journeycancer
RT @gyncsm: Also grateful for all the patients and advocates! We are stronger together. #gyncsm
Rick Boulay,MD @journeycancer
Goodnight everyone! #gyncsm
Dee Sparacio @womenofteal
Thank you @btrfly12 for your amazing talent for drafting questions, moderating and researching #gyncsm
Shannon Westin @shannonwestin
RT @gyncsm: Also grateful for all the patients and advocates! We are stronger together. #gyncsm
Shannon Westin @shannonwestin
RT @womenofteal: Remember to check https://t.co/Df2f7OBZUD for a transcript of the chat and resources #gyncsm
Dee Sparacio @womenofteal
@journeycancer Good night Rick. Have a good rest of the summer. #gyncsm
Shannon Westin @shannonwestin
Good night all! Thanks for the great chat! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
RT @Behrouz_Zand: a group of diseases from abnormal proliferation of trophoblasts-- these are cells from the placenta https://t.co/ah6EXJNy…
Dee Sparacio @womenofteal
@ShannonWestin Thank you and all the other physicians joining tonight from MD Anderson. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
RT @journeycancer: Molar pregnancy, persistent mole, invasive mole choriocarcinoma .. most need only a D and C. Some need chemo.…
Jillosopher @jillosopher
goodnight #gyncsm and thanks for moderating, Dee and Christina. Thanks all. <3 TIL... I've much to learn!
Dee Sparacio @womenofteal
RT @gyncsm: Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats.
GYN Cancer | #GYNCSM @gyncsm
RT @Behrouz_Zand: Important to know: About 1/2 from molar pregnancies, 1/4 from miscarriages or ectopic and 1/4 from normal or prete…
GYN Cancer | #GYNCSM @gyncsm
RT @Behrouz_Zand: Also important to get chest CT. About 40% will have micrometastases to the lungs that were negative on chest x-ray…
Dr. Bracken Kolle ⚕ @bskolle
RT @gyncsm: T3: What is Gestational trophoblastic disease (GTDisease)? What types of GTDisease are there? Are they all malignant? #gyncsm
Dr. Bracken Kolle ⚕ @bskolle
RT @btrfly12: T4: Most women with GTDisease are now diagnosed early because of the use of blood tests and ultrasound early in pregnancy. #…
Dr. Bracken Kolle ⚕ @bskolle
RT @ShannonWestin: #BRCA mutation can put pts at risk for PPC - even if the ovaries have been removed! #gyncsm
Dr. Bracken Kolle ⚕ @bskolle
RT @nicoleflemingmd: Hello, glad to be joining my first tweet chat #gyncsm Gyn Oncologist from @MDAndersonNews
Shannon Westin @shannonwestin
@julienegrin @LguzzardiM in general, we don't image unless there R symptoms/issues. Ultimately, radiation exposure is no concern if reason is there #gyncsm
Christina Lizaso @btrfly12
@womenofteal Thanks for putting up w/ my "right to the deadline" tendencies :) And for staying up late to to the post-chat blog! #gyncsm
Shannon Westin @shannonwestin
Good night all! #gyncsm
Lisa M Guzzardi, RN @lguzzardim
@btrfly12 Thank YOU ! There would be no #gyncsm without your endless dedication. I'm honored to be a recipient of your advocacy efforts.
Rick Boulay,MD @journeycancer
RT @gyncsm: Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
Christina Lizaso @btrfly12
@LguzzardiM honored and humbled :) #gyncsm
Dee Sparacio @womenofteal
@btrfly12 We make it work and we are a darn good team- even if we are 1000's of miles apart. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
ICYMI: Dee and Christina are in this year's crop of HIT100 - a crowd-sourced list of people in Health IT to follow. :) #gyncsm
Dee Sparacio @womenofteal
@gyncsm A real honor for Christina and I. #gyncsm
Christina Lizaso @btrfly12
@womenofteal someday we'll have to meet in person, huh? tech is sometimes awesome :) #gyncsm
Frieda Weeks @hope4heather
RT @ShannonWestin: @LguzzardiM We follow just like #ovariancancer - looking for symptoms of concern and follow CA125 levels. No routine ima…
Frieda Weeks @hope4heather
RT @KathleenMaxian: For #BRCA positive women at high risk that 1 to 3% is much better than 40% chance of #ovariancancer #gyncsm https://t.…
Christina Lizaso @btrfly12
TIL: While the science may be pending for many w/ rare disease, there are resources, support and passionate advocates #gyncsm
Dee Sparacio @womenofteal
@btrfly12 Oh yes we will meet IRL I am sure of it. #gyncsm
Shannon Westin @shannonwestin
RT @btrfly12: TIL: While the science may be pending for many w/ rare disease, there are resources, support and passionate advocates #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Thanks to everyone who supports and participates in #gyncsm. You make this community great. #gyncsm
Shannon Westin @shannonwestin
RT @gyncsm: Thanks to everyone who supports and participates in #gyncsm. You make this community great. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Thanks to everyone who supports and participates in #gyncsm. You make this community great. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Please share with #gyncsm any campaigns and plans you have for Ovarian and Gyn Cancer Awareness Month. Happy to support.
Dee Sparacio @womenofteal
Waiting on the chat stats and then I will be off to write the post-chat blog post #gyncsm
Wafik El-Deiry MDPhD @weldeiry
The latest The Cancer Plus Daily! https://t.co/FpuzC72PiC Thanks to @eramshaw @kboreilly @Brent_Thoma #gyncsm #bookloversday

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