#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
– ().
See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | NCI Cancer Stats @NCICancerStats Compared to other cancers, vulvar cancer is rare. There will be ~6,190 new cases in the US this year. Find more stats from our website: https://t.co/XMsn3sBIRe #GynecologicCancerAwarenessMonth #GynCSM https://t.co/5KSB72OcVS |
 | MobileODT @MobileODT Every year thousands of US women die needlessly from #cervicalcancer. Don’t be one of them. Schedule your well-woman exam today #GYNCSM #womenshealth https://t.co/swr95NMbAf |
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Scot Ackerman, M.D. @Dr_S_Ackerman 9-year #CervicalCancer survivor Judy Parnitzke found the answers she needed during her cancer treatment at Ackerman Cancer Center. #gyncsm Click the link below to learn more about her story. https://t.co/jjXrU1uBFe |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Our health care moderators are @ShannonWestin @journeycancer @temkins and our mental health moderator @DrBeckerSchutte #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Please join us as we welcome Dr. Sarah Temkins @temkins as our newest #gyncsm health care moderator. |
 | Dee Sparacio @womenofteal RT @gyncsm: Our health care moderators are @ShannonWestin @journeycancer @temkins and our mental health moderator @DrBeckerSchutte #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We thank @DrMarkham for her support and advice as we built this community through to our 5th anniversary today. We also thank another founding moderator, @DrDonSDizon for all his contributions to the community. #gyncsm |
| Dee Sparacio @womenofteal So glad you are joining us Dr Temkins! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As we celebrate 5 years of #gyncsm chats, we thank all of you for your support and participation. |
| GYN Cancer | #GYNCSM @gyncsm We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
| Dee Sparacio @womenofteal #gyncsm |
 | Rick Boulay,MD @journeycancer Hi Sarah! Welcome. Looking forward to your insights #gyncsm |
 | IamCervivor @IamCervivor RT @gyncsm: Please join us as we welcome Dr. Sarah Temkins @temkins as our newest #gyncsm health care moderator. |
| Rick Boulay,MD @journeycancer Hi Dee and Christina! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We thank @DrMarkham for her support and advice as we built this community through to our 5th anniversary today. We also thank another founding moderator, @DrDonSDizon for all his contributions to the community. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm September is Gynecologic Cancer Awareness Month and #OvarianCancer Awareness Month - DM/email @gyncsm or use #gyncsm for any messages you'd like to spread. Thanks for all each of you are doing this awareness month. |
| IamCervivor @IamCervivor Hi everyone! #gyncsm |
| Dee Sparacio @womenofteal Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger & co-moderator #gyncsm |
 | Robin Martinez @RobinSmrtPtient Hi, everyone, Robin from Smart Patients here. :-) #gyncsm |
 | Clearity Foundation @ClearityFnd Clearity Foundation here! We are a non-profit based in #SanDiego dedicated to helping ovarian cancer patients and their families make better informed treatment decisions. #gyncsm |
 | Sangeeta (Helpsy) @sanHelpsy @gyncsm Hi everyone. My name is Sangeeta. I'm CEO of Helpsy, a cancer nurse, holistic expert and a long term caregiver for cancer patient. #gyncsm |
 | Elixir Fund @elixirfund Hello, Meg McQuarrie from the Elixir Fund. #gyncsm |
 | Akanksha Nayak @anayak2111 RT @gyncsm: You're invited! Join #gyncsm (gynecologic cancer social media) on Wed Sep 12th at 9pmET for our "Digital Health Fair" chat: You're invited! Join #gyncsm (gynecologic cancer social media) on Wed Sep 12th at 9pmET for our "Digital Health Fair" chat: We Need Support - Where Do We Find It? https://t.co/oAfi7Me49e #IWishIKnew #GCAM #OvarianCancerAwarenessMonth #EndWomensCancer #womenshealth https://t.co/J3Xl96eaFo |
 | Debra Hallisey @advocatemomdad Deb here from @advocateformomdad. Blogger on caregiving issues. #gyncsm |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm |
 | Tanya Temkin @tanyaltee @tanyaltee. Berkeley CA. Trying to survive #GYNCSM |
 | COLONTOWN @COLONTOWN RT @CancerAdvocacy: Please help spread the word below. Resources for #cancer survivors in the path of Hurricane Florence from @CDC_Cancer. #Florence #HurricaneFlorence #bcsm #lcsm #gyncsm #pedcsm #ayacsm #mmsm #btsm #kcsm |
 | @FacingOurRisk @FacingOurRisk Hi All! FORCE: Facing Our Risk of Cancer Empowered is happy to be here too! #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: We thank @DrMarkham for her support and advice as we built this community through to our 5th anniversary today. We also thank another founding moderator, @DrDonSDizon for all his contributions to the community. #gyncsm |
| Debra Hallisey @advocatemomdad @elixirfund Hi Meg! #gyncsm |
 | Jillosopher, BSN, RN @jillosopher Jill, dx'd Jan 2017 stage 3a grade 1 endometrial ca. Just graduated from accelerated nursing program. Studying for boards now. :) #gyncsm |
| Rick Boulay,MD @journeycancer Hi everyone. Rick Boulay MD Gyn Oncologist. St Lukes Health Network Bethlehem PA #gyncsm |
| Dee Sparacio @womenofteal So glad to see @IamCervivor @RobinSmrtPtient @sanHelpsy @ClearityFnd @elixirfund @advocatemomdad @FacingOurRisk here with us tonight! #gyncsm |
| Elixir Fund @elixirfund @advocatemomdad Hi Deb.#gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm |
| Akanksha Nayak @anayak2111 RT @sanHelpsy: @gyncsm Hi everyone. My name is Sangeeta. I'm CEO of Helpsy, a cancer nurse, holistic expert and a long term caregiver for cancer patient. #gyncsm |
 | Cancer Hope Network @CancerHopeNet Hi! Cancer Hope Network here - we provide #peersupport for patients and their loved ones. #gyncsm |
 | SPBOC Foundation @SPBOCF Susan Poorman Blackie Ovarian Cancer Foundation here, family foundation and partner with @ClearityFnd on support programming. Looking forward to your wisdom. #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: So glad to see @IamCervivor @RobinSmrtPtient @sanHelpsy @ClearityFnd @elixirfund @advocatemomdad @FacingOurRisk here with us tonight! #gyncsm |
 | Inspire @InspireIsHealth @gyncsm Hello to #gyncsm and congratulations, John Novack checking in from Inspire. |
| IamCervivor @IamCervivor @womenofteal @RobinSmrtPtient @sanHelpsy @ClearityFnd @elixirfund @advocatemomdad @FacingOurRisk We are excited to participate. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Please continue intro's and welcomes while we share our "ground rules" :) #gyncsm |
| Cancer Hope Network @CancerHopeNet Happy anniversary, #gyncsm community! |
 | David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd David, precision-medicine methodologist. Joining to learn more about patients’ needs and support resources you value. #gyncsm |
| Debra Hallisey @advocatemomdad @CancerHopeNet Hi is this Wanda? #gyncsm |
| Dee Sparacio @womenofteal @jillosopher Hi Jill Glad you are joining us! #gyncsm |
| Dee Sparacio @womenofteal @SPBOCF @ClearityFnd So glad you are here with us! #gyncsm |
| @FacingOurRisk @FacingOurRisk Congrats on 5 years @gyncsm! #gyncsm |
| Inspire @InspireIsHealth RT @gyncsm: September is Gynecologic Cancer Awareness Month and #OvarianCancer Awareness Month - DM/email @gyncsm or use #gyncsm for any messages you'd like to spread. Thanks for all each of you are doing this awareness month. |
| Dee Sparacio @womenofteal @teaminspire @gyncsm Hi John Thanks for joining us! #gyncsm |
 | Ovarian Cancer Research Alliance @ocrahope Hi All, OCRFA is here and looking forward to a great and informative #gyncsm chat! |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| IamCervivor @IamCervivor #Cervivor is a community committed to #cervicalcancer advocacy & support. Our advocates have/have had cervical cancer & now advocate for awareness & prevention. We believe our stories can shift the narrative on this disease. Check out our site https://t.co/6rA9a00H4e #gyncsm |
| SPBOC Foundation @SPBOCF RT @gyncsm: September is Gynecologic Cancer Awareness Month and #OvarianCancer Awareness Month - DM/email @gyncsm or use #gyncsm for any messages you'd like to spread. Thanks for all each of you are doing this awareness month. |
| Debra Hallisey @advocatemomdad Congratulations on 5 years @gyncsm. You do amazing work. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @womenofteal @IamCervivor @RobinSmrtPtient @ClearityFnd @elixirfund @advocatemomdad @FacingOurRisk Excited to learn and contribute to the conversation! #gyncsm |
| Dee Sparacio @womenofteal Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #gyncsm |
| Rick Boulay,MD @journeycancer Wow! So many new folks tonight! Welcome to all of you. #gyncsm |
| Dee Sparacio @womenofteal Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal info #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Please note: #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience. #gyncsm |
 | Cancer and Careers @CancerAndCareer Hi everyone! Cancer and Careers here. We're excited to be joining this chat #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Please note: Please note: #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience. #gyncsm |
 | Catherine Gegaris @cgegaris1 #gyncsm |
| Dee Sparacio @womenofteal #gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest |
| GYN Cancer | #GYNCSM @gyncsm We are so grateful for all the organizations taking time to join us this evening. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over if you prefer. #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: We are so grateful for all the organizations taking time to join us this evening. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over if you prefer. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Today's #gyncsm chat is a little different. We will start with our chat topic “We Need Support , Where Do We Find It ?” and hold our first ever Digital Health Fair of organizations who support gyn cancer patients. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @womenofteal: #gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest |
| Dee Sparacio @womenofteal So glad to have @ocrfa @CancerAndCareer with us #gyncsm |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello everyone. I'm Shereese, Healthcare strategist, speaker, and advocate from Maryland #gyncsm https://t.co/9frVbRG4Hp |
| Dee Sparacio @womenofteal RT @gyncsm: We are so grateful for all the organizations taking time to join us this evening. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over if you prefer. #gyncsm |
| Dee Sparacio @womenofteal Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat |
| Ovarian Cancer Research Alliance @ocrahope RT @gyncsm: The #gyncsm (GYNecologic Cancer Social Media) chat will get started in a few minutes! |
| Dee Sparacio @womenofteal @ShereesePubHlth Hi there Sheeresse Thanks for joining! #gyncsm |
 | Tobey @BRCAinfo @gyncsm #gyncsm Happy Anniversary 💕 Thanks for all you do |
| GYN Cancer | #GYNCSM @gyncsm As moderator, I'll introduce 2 Topic questions T1, T2... and then move on to the Digital Health Fair. Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm |
| Jillosopher, BSN, RN @jillosopher @ShereesePubHlth Always with the best memes! #gyncsm |
| Dee Sparacio @womenofteal #gyncsm |
| Clearity Foundation @ClearityFnd RT @gyncsm: September is Gynecologic Cancer Awareness Month and #OvarianCancer Awareness Month - DM/email @gyncsm or use #gyncsm for any messages you'd like to spread. Thanks for all each of you are doing this awareness month. |
| Dee Sparacio @womenofteal We are excited to hold this Digital Health Fair as we celebrate the #gyncsm ‘s 5th Anniversary tonight. https://t.co/FGJaa1OBDR |
| Inspire @InspireIsHealth RT @gyncsm: Today's #gyncsm chat is a little different. We will start with our chat topic “We Need Support , Where Do We Find It ?” and hold our first ever Digital Health Fair of organizations who support gyn cancer patients. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: As moderator, I'll introduce 2 Topic questions T1, T2... and then move on to the Digital Health Fair. Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: Today's #gyncsm chat is a little different. We will start with our chat topic “We Need Support , Where Do We Find It ?” and hold our first ever Digital Health Fair of organizations who support gyn cancer patients. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: Today's #gyncsm chat is a little different. We will start with our chat topic “We Need Support , Where Do We Find It ?” and hold our first ever Digital Health Fair of organizations who support gyn cancer patients. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm You can find more information about tonight’s #gyncsm discussion and Digital Health Fair here: https://t.co/0VsXzCJ4Ho #gyncsm |
| IamCervivor @IamCervivor Yay!! Happy anniversary! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Reminder - #gyncsm is not a forum for individual medical advice and today's chat is solely informational and not a substitute for speaking w/ a healthcare professional who is familiar w/ your medical needs and history. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: You can find more information about tonight’s #gyncsm discussion and Digital Health Fair here: You can find more information about tonight’s #gyncsm discussion and Digital Health Fair here: https://t.co/0VsXzCJ4Ho #gyncsm |
| Rick Boulay,MD @journeycancer RT @womenofteal: We are excited to hold this Digital Health Fair as we celebrate the #gyncsm ‘s 5th Anniversary tonight. https://t.co/FGJaa1OBDR |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: Reminder - #gyncsm is not a forum for individual medical advice and today's chat is solely informational and not a substitute for speaking w/ a healthcare professional who is familiar w/ your medical needs and history. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Busy chat already! :) Here's topic 1....#gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: Reminder - #gyncsm is not a forum for individual medical advice and today's chat is solely informational and not a substitute for speaking w/ a healthcare professional who is familiar w/ your medical needs and history. #gyncsm |
 | Alicia C. Staley @stales @gyncsm Congrats on 5 years of chats!! Awesome work! #Gyncsm |
| Alicia C. Staley @stales @gyncsm The #BCSM community is wishing you the best and congrats! #GYNCSM |
| GYN Cancer | #GYNCSM @gyncsm T1: What are the types of support patients need at diagnosis, during treatment and after? What is most important for you, your loved one or those you support? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T1: T1: What are the types of support patients need at diagnosis, during treatment and after? What is most important for you, your loved one or those you support? #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: You can find more information about tonight’s #gyncsm discussion and Digital Health Fair here: You can find more information about tonight’s #gyncsm discussion and Digital Health Fair here: https://t.co/0VsXzCJ4Ho #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @gyncsm: T1: T1: What are the types of support patients need at diagnosis, during treatment and after? What is most important for you, your loved one or those you support? #gyncsm |
 | Angela Alexander PhD @thecancergeek Hello #gyncsm - just popping in to say hi. It’s been a while since I joined! |
| Dee Sparacio @womenofteal @thecancergeek Hello Glad you are here tonight! #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: Today's #gyncsm chat is a little different. We will start with our chat topic “We Need Support , Where Do We Find It ?” and hold our first ever Digital Health Fair of organizations who support gyn cancer patients. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: T1: T1: What are the types of support patients need at diagnosis, during treatment and after? What is most important for you, your loved one or those you support? #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: T1: T1: What are the types of support patients need at diagnosis, during treatment and after? What is most important for you, your loved one or those you support? #gyncsm |
| Dee Sparacio @womenofteal A1 I’ve heard women say help with getting to treatments, food shopping, child care and house cleaning as well as someone to just listen were important was to support them during treatment. #gyncsm |
| Christina Lizaso @btrfly12 T1: At first I see a big need to not feel alone. Also a competing desire to learn all you can but also not wanting to overwhelm yourself. #gyncsm |
| Robin Martinez @RobinSmrtPtient T1- When diagnosed, people are usually too upset to hear much. #gyncsm |
| Rick Boulay,MD @journeycancer As many facets as there are in our lives, each of them requires support as cancer touches everything. #GYNCSM |
| Robin Martinez @RobinSmrtPtient They need a brief status and tentative care plan, written material, AND to know where to go when ready to hear or ask more. #gyncsm |
| Cancer Hope Network @CancerHopeNet @gyncsm Over time, that often grows to include the desire to connect to someone who has followed a similar treatment plan. #gyncsm |
| Tanya Temkin @tanyaltee @tanyaltee. T1. When I was diagnosed stage 4 OvCa I could have used an on site patient navigator #GYNCSM |
| Cancer Hope Network @CancerHopeNet RT @btrfly12: T1: T1: At first I see a big need to not feel alone. Also a competing desire to learn all you can but also not wanting to overwhelm yourself. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Keep going with T1 - I'll also put Topic 2 out and then we'll start the "health fair" #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 Patients needs educational support, survivorship support, and peer support. many won't initially turn to physicians for support, but all need some form of support #gyncsm https://t.co/Y7ium628d9 |
| Dee Sparacio @womenofteal excellent point ! #gyncsm |
| Jillosopher, BSN, RN @jillosopher @btrfly12 I wished I had someone to navigate and to research for me when first diagnosed. I've been that person to many others. I needed a "me" for me. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2: For emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm #gyncsm |
| @FacingOurRisk @FacingOurRisk T1: We often hear that the opportunity to see or talk to another person with a similar diagnosis is a huge benefit - eliminating/reducing feelings of isolation. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @journeycancer: As many facets as there are in our lives, each of them requires support as cancer touches everything. #GYNCSM |
| Dee Sparacio @womenofteal RT @gyncsm: T2: T2: For emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm #gyncsm |
| SPBOC Foundation @SPBOCF RT @journeycancer: As many facets as there are in our lives, each of them requires support as cancer touches everything. #GYNCSM |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: T1 Patients needs educational support, survivorship support, and peer support. many won't initially turn to physicians for support, but all need some form of support #gyncsm https://t.co/Y7ium628d9 |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @jillosopher: @btrfly12 I wished I had someone to navigate and to research for me when first diagnosed. I've been that person to many others. I needed a "me" for me. #gyncsm |
 | Georgia @_GeorgiaHurst RT @womenofteal: excellent point ! #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T1: Knowledge is power here. Patients are in need of education and supportive resources. #gyncsm |
| Dee Sparacio @womenofteal RT @sanHelpsy: T1: T1: Knowledge is power here. Patients are in need of education and supportive resources. #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm |
| Tanya Temkin @tanyaltee @tanyaltee. I had no idea what I was getting into. The thought of chemo terrified me. #GYNCSM |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @gyncsm: T2: T2: For emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm #gyncsm |
| IamCervivor @IamCervivor T2: A combination of support is helpful for different needs. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: T2: T2: For emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: T2: T2: For emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm #gyncsm |
| Debra Hallisey @advocatemomdad T1. Support that includes caregivers and family members so they can better support their loved one. #gyncsm |
 | Frank Ingram, MD @Chucktowndoc Ingram here. Community pathologist in NC. Bracing for #HurricaneFlorence2018 !! #gyncsm |
| @FacingOurRisk @FacingOurRisk T2: There is a benefit to each type of support program and it depends on the person's personality what they're comfortable with. Many orgs, incl. us, offer a variety of support programs so that people can find the best fit. #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @sanHelpsy: T1: T1: Knowledge is power here. Patients are in need of education and supportive resources. #gyncsm |
 | Linda Halsey @LindaHalsey2 RT @gyncsm: T2: T2: For emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm #gyncsm |
| Dee Sparacio @womenofteal @Chucktowndoc Welcome. Thanks for joining us. Hope you safe over the next few days. #gyncsm |
| Jillosopher, BSN, RN @jillosopher T2: online Facebook group only. Once a month at hospital hasn't been convenient. #gyncsm |
 | Sarah Cassidy @CassidyFish2 When I was a #caregiver, it helped me to talk with someone who'd had a similar dx/treatment. All my love couldn't make me understand chemo's impact. A #survivor inched me a bit closer. Gave me comfort and confidence. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Now it is time for our Digital Health Fair! We have a number of organizations that support women impacted by gyn cancers and their caregivers. We will roughly go in alpha order by twitter handle. Some overlap is okay. #gyncsm |
| @FacingOurRisk @FacingOurRisk @temkins Support is crucial! #gyncsm |
| Debra Hallisey @advocatemomdad T2. All of them. Talking to a person who has gone through it gives you different support than taking part in-person groups. #gyncsm |
| Rick Boulay,MD @journeycancer All of these support mechanism have their benefits. #GYNCSM |
 | WHATNEXT.com @WHATNEXT_Cancer #gyncsm Hello, late checking in. |
| IamCervivor @IamCervivor RT @gyncsm: Now it is time for our Digital Health Fair! We have a number of organizations that support women impacted by gyn cancers and their caregivers. We will roughly go in alpha order by twitter handle. Some overlap is okay. #gyncsm |
| Dee Sparacio @womenofteal A2 online support groups like ACOR or peer support like @Cancerhopenet was helpful when I was in treatment & too tired to travel. After treatment in–person was helpful too. #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope RT @gyncsm: T1: T1: What are the types of support patients need at diagnosis, during treatment and after? What is most important for you, your loved one or those you support? #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 Its important for patients to get in where they fit it. Find your type of support; don't feel you need to participate in one thing or the other. #gyncsm https://t.co/ZygTFaIJ7G |
| Sangeeta (Helpsy) @sanHelpsy T2: Couldn't agree more that each support program is beneficial and that it depends on the person's personality. #gyncsm |
| Dee Sparacio @womenofteal @WhatNext_Cancer Glad you are here! #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope RT @gyncsm: T2: T2: For emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @CassidyFish2: When I was a #caregiver, it helped me to talk with someone who'd had a similar dx/treatment. All my love couldn't make me understand chemo's impact. A #survivor inched me a bit closer. Gave me comfort and confidence. #gyncsm |
| Debra Hallisey @advocatemomdad T2. Online support groups can give a level of anonymity if you need to vent. #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @womenofteal: A2 online support groups like ACOR or peer support like @Cancerhopenet was helpful when I was in treatment & too tired to travel. After treatment in–person was helpful too. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We ask each org to share roughly 3 tweets on who they are and how they support women/caregivers. Looks like several that start with Cancer are up first :) #gyncsm |
| Cancer and Careers @CancerAndCareer Cancer and Careers (CAC) is a national non-profit that empowers and educates people with #cancer to thrive int heir workplace by providing expert advice, interactive tools and educational programs #gyncsm |
| Dee Sparacio @womenofteal Yes everyone is different and needs to find what works for them. #gyncsm |
| Jillosopher, BSN, RN @jillosopher T1: Post treatment, I've needed help with cancer "PTSD" and I'm getting it at my cancer center. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy T1: Great to hear from the perspective of the #caregiver. #gyncsm |
| Cancer Hope Network @CancerHopeNet @journeycancer Yes! What works for you is what works best. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: Now it is time for our Digital Health Fair! We have a number of organizations that support women impacted by gyn cancers and their caregivers. We will roughly go in alpha order by twitter handle. Some overlap is okay. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @WhatNext_Cancer #gyncsm https://t.co/EpsZDBzzNJ |
| Dee Sparacio @womenofteal RT @gyncsm: We ask each org to share roughly 3 tweets on who they are and how they support women/caregivers. Looks like several that start with Cancer are up first :) #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: We ask each org to share roughly 3 tweets on who they are and how they support women/caregivers. Looks like several that start with Cancer are up first :) #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @advocatemomdad: T2. Online support groups can give a level of anonymity if you need to vent. #gyncsm |
| Tanya Temkin @tanyaltee @tanyaltee. T2. Depends on what I needed support with. Practical stuff like shppping or transportation: friends. Emotional support: one on one peer Support through SHARE. More recently on FB closed support groups. #GYNCSM |
| Cancer Hope Network @CancerHopeNet RT @CancerAndCareer: Cancer and Careers (CAC) is a national non-profit that empowers and educates people with #cancer to thrive int heir workplace by providing expert advice, interactive tools and educational programs #gyncsm |
| Cancer and Careers @CancerAndCareer For 17 years, we have been focused on the challenges #cancer survivors face in the workplace and developing programs & services to address them #gyncsm |
| Christina Lizaso @btrfly12 T2: I'm not really an in-person person. Such an introvert. But I've really enjoyed when I stretched myself and went to local @FacingOurRisk meetings. #gyncsm |
| Dee Sparacio @womenofteal RT @CancerAndCareer: Cancer and Careers (CAC) is a national non-profit that empowers and educates people with #cancer to thrive int heir workplace by providing expert advice, interactive tools and educational programs #gyncsm |
| Dee Sparacio @womenofteal @jillosopher Glad you are finding the support you need. #gyncsm |
| IamCervivor @IamCervivor RT @CancerAndCareer: Cancer and Careers (CAC) is a national non-profit that empowers and educates people with #cancer to thrive int heir workplace by providing expert advice, interactive tools and educational programs #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: T2 Its important for patients to get in where they fit it. Find your type of support; don't feel you need to participate in one thing or the other. #gyncsm https://t.co/ZygTFaIJ7G |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @advocatemomdad: T2. Online support groups can give a level of anonymity if you need to vent. #gyncsm |
| Cancer Hope Network @CancerHopeNet We provide one-on-one support for #patients and #caregivers by connecting trained #SupportVolunteers (like @womenofteal!) wiho have faced a similar situation. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @btrfly12 @FacingOurRisk That me as well. I prefer on-line engagement but after i started attending conferences I became more comfortable speaking to patient groups #gyncsm |
| Debra Hallisey @advocatemomdad RT @CancerAndCareer: Cancer and Careers (CAC) is a national non-profit that empowers and educates people with #cancer to thrive int heir workplace by providing expert advice, interactive tools and educational programs #gyncsm |
 | Amanda Crowell Itliong @MIShouldTalk Hey y’all! T2 Since I was dx with ovarian cancer in my 20s I found AYA groups and connections more helpful than ovarian cancer groups. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @MIShouldTalk: Hey y’all! T2 Since I was dx with ovarian cancer in my 20s I found AYA groups and connections more helpful than ovarian cancer groups. #gyncsm |
 | Ann Becker-Schutte @DrBeckerSchutte Very late arrival to #gyncsm chat—first night of golf lessons for the kiddo and my timing is off. |
| Dee Sparacio @womenofteal #gyncsm |
| Debra Hallisey @advocatemomdad RT @tanyaltee: @tanyaltee. T2. Depends on what I needed support with. Practical stuff like shppping or transportation: @tanyaltee. T2. Depends on what I needed support with. Practical stuff like shppping or transportation: friends. Emotional support: one on one peer Support through SHARE. More recently on FB closed support groups. #GYNCSM |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @jillosopher: T1: T1: Post treatment, I've needed help with cancer "PTSD" and I'm getting it at my cancer center. #gyncsm |
| Clearity Foundation @ClearityFnd Clearity exists to help women find credible info about their OC & the treatments that can help them survive. Our goal is to understand each patient’s unique priorities & needs. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @womenofteal Thanks, Dee. It's been great. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @sanHelpsy: T1: T1: Great to hear from the perspective of the #caregiver. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thanks for staring us rolling @CancerAndCareer - @canerhopenet and other c's can start along too :) #gyncsm |
| Dee Sparacio @womenofteal @CancerHopeNet I remember how much better I felt after talking to a volunteer back in 2005. #gyncsm |
 | Proactive Genes @ProactiveGenes T2: one on one email support - has been a great resource for me as I’m usually on the go! #gyncsm |
| Debra Hallisey @advocatemomdad RT @CancerHopeNet: We provide one-on-one support for #patients and #caregivers by connecting trained #SupportVolunteers (like @womenofteal!) wiho have faced a similar situation. #gyncsm |
| Cancer Hope Network @CancerHopeNet We connect people at all stages of their experience - from diagnosis, through treatment and into survivorship. As several have mentioned, tonight, different people need support at different times. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm |
| Elixir Fund @elixirfund The Elixir Fund, https://t.co/lsd79XJZ4u, is dedicated to improving the comfort and care of cancer patients & their caregivers #gyncsm |
| Dee Sparacio @womenofteal Hi @MIShouldTalk and @DrBeckerSchutte #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @btrfly12: T2: T2: I'm not really an in-person person. Such an introvert. But I've really enjoyed when I stretched myself and went to local @FacingOurRisk meetings. #gyncsm |
| Elixir Fund @elixirfund We help individuals nationwide to identify & access support services in their local areas. #gyncsm |
| Debra Hallisey @advocatemomdad RT @elixirfund: The Elixir Fund, https://t.co/lsd79XJZ4u, is dedicated to improving the comfort and care of cancer patients & their caregivers #gyncsm |
| @FacingOurRisk @FacingOurRisk @btrfly12 It can be difficult to go to in-person meetings, but I'm glad it was worth it! 😀 #gyncsm |
| Dee Sparacio @womenofteal RT @ClearityFnd: Clearity exists to help women find credible info about their OC & the treatments that can help them survive. Our goal is to understand each patient’s unique priorities & needs. #gyncsm |
| Elixir Fund @elixirfund Currently we are expanding the Elixir Fund Registry. A free, online support registry for patients & caregivers to register for the services they need- food, gas/rides, housekeeping, massage, etc. #gyncsm |
| @FacingOurRisk @FacingOurRisk RT @btrfly12: T2: T2: I'm not really an in-person person. Such an introvert. But I've really enjoyed when I stretched myself and went to local @FacingOurRisk meetings. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte So many people come to me after treatment. Both for cancer-related trauma and for the challenges of feeling lost after the schedule of treatment. #gyncsm |
| Debra Hallisey @advocatemomdad RT @CancerHopeNet: We connect people at all stages of their experience - from diagnosis, through treatment and into survivorship. As several have mentioned, tonight, different people need support at different times. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm A reminder to include #gyncsm in your tweets so others can follow along. |
| Dee Sparacio @womenofteal RT @CancerHopeNet: We connect people at all stages of their experience - from diagnosis, through treatment and into survivorship. As several have mentioned, tonight, different people need support at different times. #gyncsm |
| IamCervivor @IamCervivor RT @ClearityFnd: Clearity exists to help women find credible info about their OC & the treatments that can help them survive. Our goal is to understand each patient’s unique priorities & needs. #gyncsm |
| Debra Hallisey @advocatemomdad RT @elixirfund: We help individuals nationwide to identify & access support services in their local areas. #gyncsm |
| Tanya Temkin @tanyaltee @tanyaltee. A2. Sometimes I have found peer support most helpful, other times professional SW. Depends. It’s not either /or. #GYNCSM |
| IamCervivor @IamCervivor RT @CancerHopeNet: We connect people at all stages of their experience - from diagnosis, through treatment and into survivorship. As several have mentioned, tonight, different people need support at different times. #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @MIShouldTalk: Hey y’all! T2 Since I was dx with ovarian cancer in my 20s I found AYA groups and connections more helpful than ovarian cancer groups. #gyncsm |
| Dee Sparacio @womenofteal RT @elixirfund: The Elixir Fund, https://t.co/lsd79XJZ4u, is dedicated to improving the comfort and care of cancer patients & their caregivers #gyncsm |
| Cancer Hope Network @CancerHopeNet Such a key need you're filling, @CancerAndCareer! #cancer #careers #gyncsm |
| Elixir Fund @elixirfund Family, friends or the community can purchase items & the registrant receives a gift certificate, redeemable at a local participating business, for that item. https://t.co/xynKZBEQgN #gyncsm |
| Debra Hallisey @advocatemomdad RT @elixirfund: Currently we are expanding the Elixir Fund Registry. A free, online support registry for patients & caregivers to register for the services they need- food, gas/rides, housekeeping, massage, etc. #gyncsm |
| Dee Sparacio @womenofteal RT @elixirfund: We help individuals nationwide to identify & access support services in their local areas. #gyncsm |
| Rick Boulay,MD @journeycancer So true for young adults whose needs differ greatly from children and older adults #GYNCSM |
| IamCervivor @IamCervivor RT @elixirfund: The Elixir Fund, https://t.co/lsd79XJZ4u, is dedicated to improving the comfort and care of cancer patients & their caregivers #gyncsm |
| Dee Sparacio @womenofteal RT @elixirfund: Family, friends or the community can purchase items & the registrant receives a gift certificate, redeemable at a local participating business, for that item. https://t.co/xynKZBEQgN #gyncsm |
| Catherine Gegaris @cgegaris1 Starting a support group in my church helped me with many of the emotional turmoil I felt #gyncsm |
| IamCervivor @IamCervivor RT @elixirfund: Family, friends or the community can purchase items & the registrant receives a gift certificate, redeemable at a local participating business, for that item. https://t.co/xynKZBEQgN #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte Oh whoops—I totally spaced an introduction. I’m Ann, Kansas City psychologist supporting folks at the intersection of physical & mental health & #gyncsm mod. |
| GYN Cancer | #GYNCSM @gyncsm Organizations with handles C-H can get ready/jump in. Thanks all! :)#gyncsm |
| Dee Sparacio @womenofteal For those joining in now, today we are holding a Digital Health Fair and organizations offering support for women impacted by gyn cancers and their caregivers are joining us. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @elixirfund: Family, friends or the community can purchase items & the registrant receives a gift certificate, redeemable at a local participating business, for that item. https://t.co/xynKZBEQgN #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: For those joining in now, today we are holding a Digital Health Fair and organizations offering support for women impacted by gyn cancers and their caregivers are joining us. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: For those joining in now, today we are holding a Digital Health Fair and organizations offering support for women impacted by gyn cancers and their caregivers are joining us. #gyncsm |
| Dee Sparacio @womenofteal @cgegaris1 So good to hear. If there is a need you found a way to fill it. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @journeycancer: So true for young adults whose needs differ greatly from children and older adults #GYNCSM |
| Ann Becker-Schutte @DrBeckerSchutte RT @CancerHopeNet: Such a key need you're filling, @CancerAndCareer! #cancer #careers #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @DrBeckerSchutte: So many people come to me after treatment. Both for cancer-related trauma and for the challenges of feeling lost after the schedule of treatment. #gyncsm |
| Tanya Temkin @tanyaltee Thanks Christina! Forgot to mention how helpful FORCE local meeting and peer navigation was when I needed to discuss BRCA specifically #GYNCSM |
| Jillosopher, BSN, RN @jillosopher @CancerHopeNet @CancerAndCareer I'm going to need help with careers. I'm terrified of having to explain my one year absence from school. I'm about to enter workforce as an RN. #gyncsm |
| @FacingOurRisk @FacingOurRisk FORCE is a national non-profit organization dedicated to improving the lives of individuals and families affected by hereditary breast, ovarian and related cancer. https://t.co/qzKW6TA2el #hboc #gyncsm |
| Dee Sparacio @womenofteal RT @FacingOurRisk: FORCE is a national non-profit organization dedicated to improving the lives of individuals and families affected by hereditary breast, ovarian and related cancer. https://t.co/qzKW6TA2el #hboc #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 Other types of support can be financial. Many states have CaSupport initiatives where patients can have their portion of high bills paid, and its not Medicaid. #gyncsm |
| SPBOC Foundation @SPBOCF T1 We have heard many women say they could have used support knowing how to initiate difficult conversations about prognosis--with health care providers who are reluctant to deliver bad news, with family, with friends. #gyncsm |
| @FacingOurRisk @FacingOurRisk Our goal is to provide resources, support, information and awareness, to promote research and to reduce disparities -- to ensure that those affected by #hereditarycancer has the chance to be empowered, to be informed, to know they have options and THAT THEY ARE NOT ALONE! #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @FacingOurRisk: Our goal is to provide resources, support, information and awareness, to promote research and to reduce disparities -- to ensure that those affected by #hereditarycancer has the chance to be empowered, to be informed, to know they have options and THAT THEY ARE NOT ALONE! #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @tanyaltee: @tanyaltee. A2. Sometimes I have found peer support most helpful, other times professional SW. Depends. It’s not either /or. #GYNCSM |
| IamCervivor @IamCervivor RT @FacingOurRisk: FORCE is a national non-profit organization dedicated to improving the lives of individuals and families affected by hereditary breast, ovarian and related cancer. https://t.co/qzKW6TA2el #hboc #gyncsm |
 | Ginger Riley ~Eternal Optimist~ @gingerly21 RT @NCICancerStats: Compared to other cancers, vulvar cancer is rare. There will be ~6,190 new cases in the US this year. Find more stats from our website: https://t.co/XMsn3sBIRe #GynecologicCancerAwarenessMonth #GynCSM https://t.co/5KSB72OcVS |
| Christina Lizaso @btrfly12 @CancerHopeNet @gyncsm @CancerAndCareer Your timing was perfect and overlap is OK. #gyncsm |
| @FacingOurRisk @FacingOurRisk Our website is full of information about #hereditarycancer and related issues. We also have a message board, toll-free helpline and post #mastectomy photo gallery. https://t.co/qzKW6TA2el #gyncsm |
| @FacingOurRisk @FacingOurRisk We also offer a personalized 1-on-1 Peer Navigation Program and local support groups across the US. Information on clinical trials, current research studies and public policy issues are also available https://t.co/G3jsCoT7t6 #gyncsm |
| @FacingOurRisk @FacingOurRisk Our 11th Annual Joining FORCEs Against Hereditary Cancer Conference will be held Oct. 18-20th in San Diego! With sessions/workshops on all topics related to hereditary cancers, networking, and opps. to participate in HBOC research this is where 2B. https://t.co/N57aBNKoDE #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @cgegaris1: Starting a support group in my church helped me with many of the emotional turmoil I felt #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: T2 Other types of support can be financial. Many states have CaSupport initiatives where patients can have their portion of high bills paid, and its not Medicaid. #gyncsm |
| Dee Sparacio @womenofteal RT @ShereesePubHlth: T2 Other types of support can be financial. Many states have CaSupport initiatives where patients can have their portion of high bills paid, and its not Medicaid. #gyncsm |
| Dee Sparacio @womenofteal RT @SPBOCF: T1 We have heard many women say they could have used support knowing how to initiate difficult conversations about prognosis--with health care providers who are reluctant to deliver bad news, with family, with friends. #gyncsm |
| Christina Lizaso @btrfly12 RT @SPBOCF: T1 We have heard many women say they could have used support knowing how to initiate difficult conversations about prognosis--with health care providers who are reluctant to deliver bad news, with family, with friends. #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @jillosopher: @CancerHopeNet @CancerAndCareer I'm going to need help with careers. I'm terrified of having to explain my one year absence from school. I'm about to enter workforce as an RN. #gyncsm |
| Dee Sparacio @womenofteal RT @FacingOurRisk: Our website is full of information about #hereditarycancer and related issues. We also have a message board, toll-free helpline and post #mastectomy photo gallery. https://t.co/qzKW6TA2el #gyncsm |
| Dee Sparacio @womenofteal RT @FacingOurRisk: We also offer a personalized 1-on-1 Peer Navigation Program and local support groups across the US. Information on clinical trials, current research studies and public policy issues are also available https://t.co/G3jsCoT7t6 #gyncsm |
| Dee Sparacio @womenofteal RT @FacingOurRisk: Our 11th Annual Joining FORCEs Against Hereditary Cancer Conference will be held Oct. 18-20th in San Diego! With sessions/workshops on all topics related to hereditary cancers, networking, and opps. to participate in HBOC research this is where 2B. https://t.co/N57aBNKoDE #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @SPBOCF: T1 We have heard many women say they could have used support knowing how to initiate difficult conversations about prognosis--with health care providers who are reluctant to deliver bad news, with family, with friends. #gyncsm |
| WHATNEXT.com @WHATNEXT_Cancer #gyncsm WhatNext has over 50K registered users of all types of cancer, but we have a large community of all gyne cancer patients. We offer a place to share first-hand cancer experiences, share your story, inspire, motivate, and educate each other. |
| IamCervivor @IamCervivor RT @FacingOurRisk: We also offer a personalized 1-on-1 Peer Navigation Program and local support groups across the US. Information on clinical trials, current research studies and public policy issues are also available https://t.co/G3jsCoT7t6 #gyncsm |
| IamCervivor @IamCervivor RT @FacingOurRisk: Our 11th Annual Joining FORCEs Against Hereditary Cancer Conference will be held Oct. 18-20th in San Diego! With sessions/workshops on all topics related to hereditary cancers, networking, and opps. to participate in HBOC research this is where 2B. https://t.co/N57aBNKoDE #gyncsm |
| IamCervivor @IamCervivor RT @WhatNext_Cancer: #gyncsm WhatNext has over 50K registered users of all types of cancer, but we have a large community of all gyne cancer patients. We offer a place to share first-hand cancer experiences, share your story, inspire, motivate, and educate each other. |
| Dee Sparacio @womenofteal RT @WhatNext_Cancer: #gyncsm WhatNext has over 50K registered users of all types of cancer, but we have a large community of all gyne cancer patients. We offer a place to share first-hand cancer experiences, share your story, inspire, motivate, and educate each other. |
| GYN Cancer | #GYNCSM @gyncsm Thanks @FacingOurRisk - Organizations with handles A-O can be sharing if not already. Thanks again to all for joining along for our first "digital health fair" chat. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks @FacingOurRisk - Organizations with handles A-O can be sharing if not already. Thanks again to all for joining along for our first "digital health fair" chat. #gyncsm |
| Sarah Cassidy @CassidyFish2 Yes, @helpsyhealth! Toughing it out often doesn't work ....and your loved ones are hoping you'll give them something to do. #gyncsm |
| IamCervivor @IamCervivor #Cervivor is a community committed to #cervicalcancer advocacy & support. Our advocates have/have had cervical cancer & now advocate for awareness & prevention. We believe our stories can shift the narrative on this disease. Check out our site https://t.co/6rA99ZJ5FE #gyncsm |
| Rick Boulay,MD @journeycancer RT @WhatNext_Cancer: #gyncsm WhatNext has over 50K registered users of all types of cancer, but we have a large community of all gyne cancer patients. We offer a place to share first-hand cancer experiences, share your story, inspire, motivate, and educate each other. |
| Dee Sparacio @womenofteal @FacingOurRisk Such important information in easy to understand language too! #gyncsm |
| Catherine Gegaris @cgegaris1 I could have used help at the time of my diagnosis in how to tell my friends. Esp my peers and physicians in my field #gyncsm |
| Rick Boulay,MD @journeycancer RT @FacingOurRisk: Our goal is to provide resources, support, information and awareness, to promote research and to reduce disparities -- to ensure that those affected by #hereditarycancer has the chance to be empowered, to be informed, to know they have options and THAT THEY ARE NOT ALONE! #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk T2 My 1st impression was the difference between AYA and ovarian groups was huge. Talking about sex, medical weed and not being afraid to be bald vs. talking about grandkids, not saying words like vagina, and cancer shame. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @cgegaris1: I could have used help at the time of my diagnosis in how to tell my friends. Esp my peers and physicians in my field #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope OCRFA is the largest global org fighting #ovariancancer. We advance critical research, support women and families before, during & beyond diagnosis, and work w/all levels of government to ensure ovarian cancer is a priority. https://t.co/iPWcYRcntk #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: #Cervivor is a community committed to #cervicalcancer advocacy & support. Our advocates have/have had cervical cancer & now advocate for awareness & prevention. We believe our stories can shift the narrative on this disease. Check out our site https://t.co/6rA99ZJ5FE #gyncsm |
| Debra Hallisey @advocatemomdad RT @FacingOurRisk: FORCE is a national non-profit organization dedicated to improving the lives of individuals and families affected by hereditary breast, ovarian and related cancer. https://t.co/qzKW6TA2el #hboc #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @ocrfa: OCRFA is the largest global org fighting #ovariancancer. We advance critical research, support women and families before, during & beyond diagnosis, and work w/all levels of government to ensure ovarian cancer is a priority. https://t.co/iPWcYRcntk #gyncsm |
| Debra Hallisey @advocatemomdad RT @ShereesePubHlth: T2 Other types of support can be financial. Many states have CaSupport initiatives where patients can have their portion of high bills paid, and its not Medicaid. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @IamCervivor: #Cervivor is a community committed to #cervicalcancer advocacy & support. Our advocates have/have had cervical cancer & now advocate for awareness & prevention. We believe our stories can shift the narrative on this disease. Check out our site https://t.co/6rA99ZJ5FE #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope In addition to funding #ovariancancer research, OCRFA is committed to helping survivors and their families through support programs and resources. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Don't forget to include #gyncsm in your tweets :) Glad you are here to share and thanks for all you do: |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: Thanks @FacingOurRisk - Organizations with handles A-O can be sharing if not already. Thanks again to all for joining along for our first "digital health fair" chat. #gyncsm |
| Rick Boulay,MD @journeycancer RT @ocrfa: OCRFA is the largest global org fighting #ovariancancer. We advance critical research, support women and families before, during & beyond diagnosis, and work w/all levels of government to ensure ovarian cancer is a priority. https://t.co/iPWcYRcntk #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk T2 iI’s much better now! I think I grew up and groups evolved and were better facilitated! After 10 years I finally connect to the ovarian cancer crowd. #gyncsm |
| Debra Hallisey @advocatemomdad RT @FacingOurRisk: We also offer a personalized 1-on-1 Peer Navigation Program and local support groups across the US. Information on clinical trials, current research studies and public policy issues are also available https://t.co/G3jsCoT7t6 #gyncsm |
| Dee Sparacio @womenofteal RT @ocrfa: OCRFA is the largest global org fighting #ovariancancer. We advance critical research, support women and families before, during & beyond diagnosis, and work w/all levels of government to ensure ovarian cancer is a priority. https://t.co/iPWcYRcntk #gyncsm |
| @FacingOurRisk @FacingOurRisk @womenofteal That is always the goal! Information should be shared in a way that anyone (not just medical providers) can understand. It's all part of patient and self empowerment!! #gyncsm |
| IamCervivor @IamCervivor #Cervivor has both in person & online events. #CervivorSchool is an in person educational event to train advocates. We educate our advocates on #HPV #CervicalCancer & provide advocacy training & storytelling. #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope Our Woman to Woman program offers support to gynecologic (not just ovarian) cancer patients & their families, by pairing them with trained volunteer mentors. Participation is on-site at 40+ institutions, or virtual. https://t.co/OAQhTLwUeU #gyncsm |
| IamCervivor @IamCervivor RT @ocrfa: OCRFA is the largest global org fighting #ovariancancer. We advance critical research, support women and families before, during & beyond diagnosis, and work w/all levels of government to ensure ovarian cancer is a priority. https://t.co/iPWcYRcntk #gyncsm |
| Debra Hallisey @advocatemomdad RT @WhatNext_Cancer: #gyncsm WhatNext has over 50K registered users of all types of cancer, but we have a large community of all gyne cancer patients. We offer a place to share first-hand cancer experiences, share your story, inspire, motivate, and educate each other. |
| Ann Becker-Schutte @DrBeckerSchutte RT @IamCervivor: #Cervivor has both in person & online events. #CervivorSchool is an in person educational event to train advocates. We educate our advocates on #HPV #CervicalCancer & provide advocacy training & storytelling. #gyncsm |
| Clearity Foundation @ClearityFnd At @TheClearityFnd, we teach you what clinical trials are, what the different phases mean, and how to know if you should enroll in a trial. #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope For those who need to talk to someone, our Oncology Social Worker is available M-F, 12-3PM ET. Call 212-268-1002 and ask for Tracy – if she misses you she’ll get back w/in 24 hours. #gyncsm |
| Clearity Foundation @ClearityFnd Over 25% of women who have come to @ClearityFnd over the years have enrolled in #clinicaltrials! Check out our new guided trial finder: https://t.co/XyoauqqI9A #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @ClearityFnd: Over 25% of women who have come to @ClearityFnd over the years have enrolled in #clinicaltrials! Check out our new guided trial finder: https://t.co/XyoauqqI9A #gyncsm |
| Sarah Cassidy @CassidyFish2 @btrfly12 @CancerHopeNet @gyncsm @CancerAndCareer Wanda who?! 🤣#gyncsm |
| Rick Boulay,MD @journeycancer RT @IamCervivor: #Cervivor is a community committed to #cervicalcancer advocacy & support. Our advocates have/have had cervical cancer & now advocate for awareness & prevention. We believe our stories can shift the narrative on this disease. Check out our site https://t.co/6rA99ZJ5FE #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: #Cervivor has both in person & online events. #CervivorSchool is an in person educational event to train advocates. We educate our advocates on #HPV #CervicalCancer & provide advocacy training & storytelling. #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope We have an incredibly supportive, engaged online community of nearly 47K #ovariancancer survivors, caregivers and supporters, thanks to @teaminspire. https://t.co/C4Yj49P4NF #gyncsm |
| Dee Sparacio @womenofteal RT @ocrfa: Our Woman to Woman program offers support to gynecologic (not just ovarian) cancer patients & their families, by pairing them with trained volunteer mentors. Participation is on-site at 40+ institutions, or virtual. https://t.co/OAQhTLwUeU #gyncsm |
| IamCervivor @IamCervivor #Cervivor is getting ready to host it’s 10th #CervivorSchool next week. In addition, our #CervivorAmbassadors regularly host #CervivorMeetUps in their local communities. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @ocrfa: We have an incredibly supportive, engaged online community of nearly 47K #ovariancancer survivors, caregivers and supporters, thanks to @teaminspire. https://t.co/C4Yj49P4NF #gyncsm |
| Dee Sparacio @womenofteal RT @ocrfa: For those who need to talk to someone, our Oncology Social Worker is available M-F, 12-3PM ET. Call 212-268-1002 and ask for Tracy – if she misses you she’ll get back w/in 24 hours. #gyncsm |
| IamCervivor @IamCervivor RT @ocrfa: For those who need to talk to someone, our Oncology Social Worker is available M-F, 12-3PM ET. Call 212-268-1002 and ask for Tracy – if she misses you she’ll get back w/in 24 hours. #gyncsm |
| Dee Sparacio @womenofteal RT @ClearityFnd: Over 25% of women who have come to @ClearityFnd over the years have enrolled in #clinicaltrials! Check out our new guided trial finder: https://t.co/XyoauqqI9A #gyncsm |
| Dee Sparacio @womenofteal RT @ocrfa: We have an incredibly supportive, engaged online community of nearly 47K #ovariancancer survivors, caregivers and supporters, thanks to @teaminspire. https://t.co/C4Yj49P4NF #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: #Cervivor is getting ready to host it’s 10th #CervivorSchool next week. In addition, our #CervivorAmbassadors regularly host #CervivorMeetUps in their local communities. #gyncsm |
| Debra Hallisey @advocatemomdad RT @IamCervivor: #Cervivor is a community committed to #cervicalcancer advocacy & support. Our advocates have/have had cervical cancer & now advocate for awareness & prevention. We believe our stories can shift the narrative on this disease. Check out our site https://t.co/6rA99ZJ5FE #gyncsm |
| Christina Lizaso @btrfly12 I think it is important to find a group you really connect with. It might be an all-cancer group or other kinds of grouping than your exact cancer. And you could do a peer 1-1 but be in a different organized group like by age. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @btrfly12: I think it is important to find a group you really connect with. It might be an all-cancer group or other kinds of grouping than your exact cancer. And you could do a peer 1-1 but be in a different organized group like by age. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: We ask each org to share roughly 3 tweets on who they are and how they support women/caregivers. Looks like several that start with Cancer are up first :) #gyncsm |
| IamCervivor @IamCervivor RT @ocrfa: We have an incredibly supportive, engaged online community of nearly 47K #ovariancancer survivors, caregivers and supporters, thanks to @teaminspire. https://t.co/C4Yj49P4NF #gyncsm |
| IamCervivor @IamCervivor While advocacy is our primary focus, we offer online support & networking via our private Facebook groups “I’m a Cervivor” and “HPV Related Cancer Community & Support.” In addition to “Cervivor Espanol” and “Cervivor Francias” #gyncsm |
| Debra Hallisey @advocatemomdad RT @ocrfa: OCRFA is the largest global org fighting #ovariancancer. We advance critical research, support women and families before, during & beyond diagnosis, and work w/all levels of government to ensure ovarian cancer is a priority. https://t.co/iPWcYRcntk #gyncsm |
| Christina Lizaso @btrfly12 RT @ClearityFnd: Over 25% of women who have come to @ClearityFnd over the years have enrolled in #clinicaltrials! Check out our new guided trial finder: https://t.co/XyoauqqI9A #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @IamCervivor: While advocacy is our primary focus, we offer online support & networking via our private Facebook groups “I’m a Cervivor” and “HPV Related Cancer Community & Support.” In addition to “Cervivor Espanol” and “Cervivor Francias” #gyncsm |
| Rick Boulay,MD @journeycancer RT @ClearityFnd: At @TheClearityFnd, we teach you what clinical trials are, what the different phases mean, and how to know if you should enroll in a trial. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @CassidyFish2: Yes, @helpsyhealth! Toughing it out often doesn't work ....and your loved ones are hoping you'll give them something to do. #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: While advocacy is our primary focus, we offer online support & networking via our private Facebook groups “I’m a Cervivor” and “HPV Related Cancer Community & Support.” In addition to “Cervivor Espanol” and “Cervivor Francias” #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope For anyone looking to get involved, you can volunteer with our Survivors Teaching Students program, become an advocate leader and more, here: https://t.co/vCSTENnWzy #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @IamCervivor: While advocacy is our primary focus, we offer online support & networking via our private Facebook groups “I’m a Cervivor” and “HPV Related Cancer Community & Support.” In addition to “Cervivor Espanol” and “Cervivor Francias” #gyncsm |
 | Tamika Felder @tamikafelder RT @IamCervivor: While advocacy is our primary focus, we offer online support & networking via our private Facebook groups “I’m a Cervivor” and “HPV Related Cancer Community & Support.” In addition to “Cervivor Espanol” and “Cervivor Francias” #gyncsm |
| IamCervivor @IamCervivor #Cervivor desires to see a world where #cervicalcancer is eliminated! Until then, we want women to know they are not alone.#gyncsm |
| Christina Lizaso @btrfly12 I didn't know you had this service! Love knowing that. #gyncsm |
| @FacingOurRisk @FacingOurRisk @cgegaris1 Yes! Sharing information with family, friends and co-workers can be tough. Talking with others who have been there and hearing about their experiences can be invaluable. #gyncsm |
| IamCervivor @IamCervivor RT @ClearityFnd: At @TheClearityFnd, we teach you what clinical trials are, what the different phases mean, and how to know if you should enroll in a trial. #gyncsm |
| Tamika Felder @tamikafelder RT @IamCervivor: #Cervivor is getting ready to host it’s 10th #CervivorSchool next week. In addition, our #CervivorAmbassadors regularly host #CervivorMeetUps in their local communities. #gyncsm |
| Clearity Foundation @ClearityFnd T1: At Clearity, we help women access the most useful and comprehensive tests to better understand the molecular profile of their cancer. Learn more about Clearity Tumor Blueprints here: https://t.co/QAQw2KIf0y #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @MIShouldTalk: T2 My 1st impression was the difference between AYA and ovarian groups was huge. Talking about sex, medical weed and not being afraid to be bald vs. talking about grandkids, not saying words like vagina, and cancer shame. #gyncsm |
| Dee Sparacio @womenofteal @ocrfa Sharing your story with med students is a great way to get involved in advocacy. #gyncsm |
| Clearity Foundation @ClearityFnd RT @SPBOCF: T1 We have heard many women say they could have used support knowing how to initiate difficult conversations about prognosis--with health care providers who are reluctant to deliver bad news, with family, with friends. #gyncsm |
| Dee Sparacio @womenofteal RT @ClearityFnd: T1: T1: At Clearity, we help women access the most useful and comprehensive tests to better understand the molecular profile of their cancer. Learn more about Clearity Tumor Blueprints here: https://t.co/QAQw2KIf0y #gyncsm |
| Linda Halsey @LindaHalsey2 RT @ocrfa: For those who need to talk to someone, our Oncology Social Worker is available M-F, 12-3PM ET. Call 212-268-1002 and ask for Tracy – if she misses you she’ll get back w/in 24 hours. #gyncsm |
| Cancer and Careers @CancerAndCareer Learn more about our free programs, events and services at https://t.co/1qYAOFCa4p. We're also hosting our 4th annual West Coast Conference on Work & Cancer in L.A. on 10/13! For more info & to register https://t.co/SrZex85Luv #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy Learning how to break the ice and sustain the conversation is so important! #gyncsm |
| Christina Lizaso @btrfly12 Also didn't know Woman to Woman served beyond ovarian to other gyn cancer. Love it. #gyncsm |
| Dee Sparacio @womenofteal RT @CancerAndCareer: Learn more about our free programs, events and services at https://t.co/1qYAOFCa4p. We're also hosting our 4th annual West Coast Conference on Work & Cancer in L.A. on 10/13! For more info & to register https://t.co/SrZex85Luv #gyncsm |
| IamCervivor @IamCervivor RT @ClearityFnd: T1: T1: At Clearity, we help women access the most useful and comprehensive tests to better understand the molecular profile of their cancer. Learn more about Clearity Tumor Blueprints here: https://t.co/QAQw2KIf0y #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @ClearityFnd: At @TheClearityFnd, we teach you what clinical trials are, what the different phases mean, and how to know if you should enroll in a trial. #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk @ocrfa I love being involved in STS! It’s often the highlight of my week! #gyncsm |
| IamCervivor @IamCervivor RT @CancerAndCareer: Learn more about our free programs, events and services at https://t.co/1qYAOFCa4p. We're also hosting our 4th annual West Coast Conference on Work & Cancer in L.A. on 10/13! For more info & to register https://t.co/SrZex85Luv #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk RT @ocrfa: For anyone looking to get involved, you can volunteer with our Survivors Teaching Students program, become an advocate leader and more, here: https://t.co/vCSTENnWzy #gyncsm |
 | SHARE Cancer Support @SHARECancerSupt Hi #gyncsm! SHARE is a national nonprofit that supports, educates, and empowers women affected by ovarian cancer. Our mission is to create and sustain a supportive community of women affected by ovarian cancer. More info at: https://t.co/6499uoGXyI |
| Dee Sparacio @womenofteal Since they are unable to be with us : @supportconnect https://t.co/rtBkNqafVI Runs a monthly telephone support group for #ovariancancer and also has this upcoming educational webinar https://t.co/AnoqtjlwLF #gyncsm |
| Tamika Felder @tamikafelder RT @IamCervivor: Yay!! Happy anniversary! #gyncsm |
| Inspire @InspireIsHealth RT @ocrfa: Our Woman to Woman program offers support to gynecologic (not just ovarian) cancer patients & their families, by pairing them with trained volunteer mentors. Participation is on-site at 40+ institutions, or virtual. https://t.co/OAQhTLwUeU #gyncsm |
| @FacingOurRisk @FacingOurRisk I love seeing the common goal -- to let people know that they are not alone -- so vitally important! #gyncsm |
| Debra Hallisey @advocatemomdad RT @ocrfa: Our Woman to Woman program offers support to gynecologic (not just ovarian) cancer patients & their families, by pairing them with trained volunteer mentors. Participation is on-site at 40+ institutions, or virtual. https://t.co/OAQhTLwUeU #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: Since they are unable to be with us : Since they are unable to be with us : @supportconnect https://t.co/rtBkNqafVI Runs a monthly telephone support group for #ovariancancer and also has this upcoming educational webinar https://t.co/AnoqtjlwLF #gyncsm |
| Debra Hallisey @advocatemomdad RT @ClearityFnd: At @TheClearityFnd, we teach you what clinical trials are, what the different phases mean, and how to know if you should enroll in a trial. #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope @MIShouldTalk That's great to hear! Thank you for all you're doing! #gyncsm |
| Jillosopher, BSN, RN @jillosopher RT @btrfly12: Also didn't know Woman to Woman served beyond ovarian to other gyn cancer. Love it. #gyncsm |
| SHARE Cancer Support @SHARECancerSupt At SHARE we bring our insight as peers to women in need of support. Whether you're newly diagnosed yourself, want to support a friend, or are starting your life after treatment, we've been there too. All of our services are free. #gyncsm |
| SPBOC Foundation @SPBOCF @ClearityFnd is a BFF of ours and their scientific expertise is exceptional. We love the way that expertise is delivered with deep understanding and concern for the person on the receiving end of the info--they take time to explain, and time to express caring too. #gyncsm |
| Dee Sparacio @womenofteal @IamCervivor I didn't realize you offer support in spanish and french. That is helpful to know. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm All organizations who haven't gone yet in our digital health fair can start chiming in. Love learning about all the great services and support. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @SHAREing: At SHARE we bring our insight as peers to women in need of support. Whether you're newly diagnosed yourself, want to support a friend, or are starting your life after treatment, we've been there too. All of our services are free. #gyncsm |
| Debra Hallisey @advocatemomdad RT @ocrfa: We have an incredibly supportive, engaged online community of nearly 47K #ovariancancer survivors, caregivers and supporters, thanks to @teaminspire. https://t.co/C4Yj49P4NF #gyncsm |
| Rick Boulay,MD @journeycancer RT @womenofteal: Since they are unable to be with us : Since they are unable to be with us : @supportconnect https://t.co/rtBkNqafVI Runs a monthly telephone support group for #ovariancancer and also has this upcoming educational webinar https://t.co/AnoqtjlwLF #gyncsm |
| Dee Sparacio @womenofteal RT @SPBOCF: @ClearityFnd is a BFF of ours and their scientific expertise is exceptional. We love the way that expertise is delivered with deep understanding and concern for the person on the receiving end of the info--they take time to explain, and time to express caring too. #gyncsm |
| Rick Boulay,MD @journeycancer RT @SHAREing: Hi #gyncsm! SHARE is a national nonprofit that supports, educates, and empowers women affected by ovarian cancer. Our mission is to create and sustain a supportive community of women affected by ovarian cancer. More info at: https://t.co/6499uoGXyI |
| Dee Sparacio @womenofteal RT @SHAREing: At SHARE we bring our insight as peers to women in need of support. Whether you're newly diagnosed yourself, want to support a friend, or are starting your life after treatment, we've been there too. All of our services are free. #gyncsm |
| SPBOC Foundation @SPBOCF RT @ClearityFnd: At @TheClearityFnd, we teach you what clinical trials are, what the different phases mean, and how to know if you should enroll in a trial. #gyncsm |
| SPBOC Foundation @SPBOCF RT @ocrfa: Our Woman to Woman program offers support to gynecologic (not just ovarian) cancer patients & their families, by pairing them with trained volunteer mentors. Participation is on-site at 40+ institutions, or virtual. https://t.co/OAQhTLwUeU #gyncsm |
| Proactive Genes @ProactiveGenes Proactive Genes is developing resources to help parents talk to their children about genetics and hereditary risk. #gyncsm |
| Proactive Genes @ProactiveGenes Proactive Genes also welcomes the community to share their own stories about parenting during their cancer journey or previvor journey #gyncsm |
| Proactive Genes @ProactiveGenes Proactive Genes has a new resource called Mom’s Genes which is a children’s book that parents can use to start a conversation about family health history. #gyncsm |
| Debra Hallisey @advocatemomdad RT @IamCervivor: While advocacy is our primary focus, we offer online support & networking via our private Facebook groups “I’m a Cervivor” and “HPV Related Cancer Community & Support.” In addition to “Cervivor Espanol” and “Cervivor Francias” #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: @IamCervivor I didn't realize you offer support in spanish and french. That is helpful to know. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: All organizations who haven't gone yet in our digital health fair can start chiming in. Love learning about all the great services and support. #gyncsm |
| SPBOC Foundation @SPBOCF RT @ClearityFnd: T1: T1: At Clearity, we help women access the most useful and comprehensive tests to better understand the molecular profile of their cancer. Learn more about Clearity Tumor Blueprints here: https://t.co/QAQw2KIf0y #gyncsm |
| SPBOC Foundation @SPBOCF RT @ClearityFnd: Over 25% of women who have come to @ClearityFnd over the years have enrolled in #clinicaltrials! Check out our new guided trial finder: https://t.co/XyoauqqI9A #gyncsm |
| Clearity Foundation @ClearityFnd RT @SPBOCF: @ClearityFnd is a BFF of ours and their scientific expertise is exceptional. We love the way that expertise is delivered with deep understanding and concern for the person on the receiving end of the info--they take time to explain, and time to express caring too. #gyncsm |
| SHARE Cancer Support @SHARECancerSupt Our ovca helpline 866.537.4273 is staffed 7 days/week by peers who have faced an ovca diagnosis and are trained to answer questions, connect you with resources, or just listen. We can also match you with a peer who has a similar situation to you. En Español 212.719.4454 #gyncsm |
| IamCervivor @IamCervivor RT @SHAREing: At SHARE we bring our insight as peers to women in need of support. Whether you're newly diagnosed yourself, want to support a friend, or are starting your life after treatment, we've been there too. All of our services are free. #gyncsm |
| Jillosopher, BSN, RN @jillosopher RT @IamCervivor: While advocacy is our primary focus, we offer online support & networking via our private Facebook groups “I’m a Cervivor” and “HPV Related Cancer Community & Support.” In addition to “Cervivor Espanol” and “Cervivor Francias” #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @SPBOCF: @ClearityFnd is a BFF of ours and their scientific expertise is exceptional. We love the way that expertise is delivered with deep understanding and concern for the person on the receiving end of the info--they take time to explain, and time to express caring too. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @ocrfa: OCRFA is the largest global org fighting #ovariancancer. We advance critical research, support women and families before, during & beyond diagnosis, and work w/all levels of government to ensure ovarian cancer is a priority. https://t.co/iPWcYRcntk #gyncsm |
| IamCervivor @IamCervivor RT @SHAREing: Hi #gyncsm! SHARE is a national nonprofit that supports, educates, and empowers women affected by ovarian cancer. Our mission is to create and sustain a supportive community of women affected by ovarian cancer. More info at: https://t.co/6499uoGXyI |
| Sangeeta (Helpsy) @sanHelpsy RT @IamCervivor: #Cervivor is a community committed to #cervicalcancer advocacy & support. Our advocates have/have had cervical cancer & now advocate for awareness & prevention. We believe our stories can shift the narrative on this disease. Check out our site https://t.co/6rA99ZJ5FE #gyncsm |
| Debra Hallisey @advocatemomdad @IamCervivor I love that you have Spanish and French options as well. #gyncsm |
| Dee Sparacio @womenofteal @SHAREing So many wonderful women I know volunteer with SHARE. And you are in my area - NY-NJ #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: Since they are unable to be with us : Since they are unable to be with us : @supportconnect https://t.co/rtBkNqafVI Runs a monthly telephone support group for #ovariancancer and also has this upcoming educational webinar https://t.co/AnoqtjlwLF #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @FacingOurRisk: Our goal is to provide resources, support, information and awareness, to promote research and to reduce disparities -- to ensure that those affected by #hereditarycancer has the chance to be empowered, to be informed, to know they have options and THAT THEY ARE NOT ALONE! #gyncsm |
| @FacingOurRisk @FacingOurRisk @ProactiveGenes An excellent resource for the #hereditarycancer community! Thank you! #gyncsm |
| Dee Sparacio @womenofteal RT @ProactiveGenes: Proactive Genes is developing resources to help parents talk to their children about genetics and hereditary risk. #gyncsm |
| Debra Hallisey @advocatemomdad RT @ocrfa: For anyone looking to get involved, you can volunteer with our Survivors Teaching Students program, become an advocate leader and more, here: https://t.co/vCSTENnWzy #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @FacingOurRisk: I love seeing the common goal -- to let people know that they are not alone -- so vitally important! #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @SHAREing: Our ovca helpline 866.537.4273 is staffed 7 days/week by peers who have faced an ovca diagnosis and are trained to answer questions, connect you with resources, or just listen. We can also match you with a peer who has a similar situation to you. En Español 212.719.4454 #gyncsm |
| Robin Martinez @RobinSmrtPtient https://t.co/Vn6IUq0QAi is an online community where patients and their families learn from each other, sharing experiences and info. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @ClearityFnd: At @TheClearityFnd, we teach you what clinical trials are, what the different phases mean, and how to know if you should enroll in a trial. #gyncsm |
| Dee Sparacio @womenofteal RT @ProactiveGenes: Proactive Genes has a new resource called Mom’s Genes which is a children’s book that parents can use to start a conversation about family health history. #gyncsm |
| Robin Martinez @RobinSmrtPtient At https://t.co/Vn6IUq0QAi you learn at your own speed about treatments, trials, and scientific developments related to your condition. #gyncsm |
| IamCervivor @IamCervivor RT @ProactiveGenes: Proactive Genes is developing resources to help parents talk to their children about genetics and hereditary risk. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @SHAREing: Hi #gyncsm! SHARE is a national nonprofit that supports, educates, and empowers women affected by ovarian cancer. Our mission is to create and sustain a supportive community of women affected by ovarian cancer. More info at: https://t.co/6499uoGXyI |
| SHARE Cancer Support @SHARECancerSupt Our support groups are led by trained ovca peers and cover many experiences and topics, so you can get help that's right for you. SHARE offers 10 ovca support groups each month in-person or by phone. Find one for yourself https://t.co/oWrPYaGOCm All gyn cancer welcome! #gyncsm |
| Christina Lizaso @btrfly12 It used to bother me that there was so many different groups for cancers that don't have that many survivors. But it is actually a great thing. Everyone can find groups they really connect with. Everyone has different needs and all the orgs fill a piece of the puzzle. #gyncsm |
| Debra Hallisey @advocatemomdad RT @CancerAndCareer: Learn more about our free programs, events and services at https://t.co/1qYAOFCa4p. We're also hosting our 4th annual West Coast Conference on Work & Cancer in L.A. on 10/13! For more info & to register https://t.co/SrZex85Luv #gyncsm |
| Robin Martinez @RobinSmrtPtient https://t.co/Vn6IUq0QAi members talk about everything, find answers, provide reassurance, and share experiences to help. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @CancerAndCareer: For 17 years, we have been focused on the challenges #cancer survivors face in the workplace and developing programs & services to address them #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @btrfly12: It used to bother me that there was so many different groups for cancers that don't have that many survivors. But it is actually a great thing. Everyone can find groups they really connect with. Everyone has different needs and all the orgs fill a piece of the puzzle. #gyncsm |
| Debra Hallisey @advocatemomdad RT @SHAREing: Hi #gyncsm! SHARE is a national nonprofit that supports, educates, and empowers women affected by ovarian cancer. Our mission is to create and sustain a supportive community of women affected by ovarian cancer. More info at: https://t.co/6499uoGXyI |
| Dee Sparacio @womenofteal RT @SHAREing: Our ovca helpline 866.537.4273 is staffed 7 days/week by peers who have faced an ovca diagnosis and are trained to answer questions, connect you with resources, or just listen. We can also match you with a peer who has a similar situation to you. En Español 212.719.4454 #gyncsm |
| Debra Hallisey @advocatemomdad RT @womenofteal: Since they are unable to be with us : Since they are unable to be with us : @supportconnect https://t.co/rtBkNqafVI Runs a monthly telephone support group for #ovariancancer and also has this upcoming educational webinar https://t.co/AnoqtjlwLF #gyncsm |
| Robin Martinez @RobinSmrtPtient At https://t.co/Vn6IUq0QAi we aren't shy or squeamish about body parts, as Amanda commented on earlier. :-) #gyncsm |
| Rick Boulay,MD @journeycancer RT @ProactiveGenes: Proactive Genes is developing resources to help parents talk to their children about genetics and hereditary risk. #gyncsm |
 | Tim McDaniel @timmcdaniel76 RT @ocrfa: OCRFA is the largest global org fighting #ovariancancer. We advance critical research, support women and families before, during & beyond diagnosis, and work w/all levels of government to ensure ovarian cancer is a priority. https://t.co/iPWcYRcntk #gyncsm |
| Dee Sparacio @womenofteal RT @RobinSmrtPtient: https://t.co/Vn6IUq0QAi is an online community where patients and their families learn from each other, sharing experiences and info. #gyncsm |
| Rick Boulay,MD @journeycancer RT @RobinSmrtPtient: https://t.co/Vn6IUq0QAi members talk about everything, find answers, provide reassurance, and share experiences to help. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @RobinSmrtPtient: https://t.co/Vn6IUq0QAi members talk about everything, find answers, provide reassurance, and share experiences to help. #gyncsm |
| Debra Hallisey @advocatemomdad RT @SHAREing: At SHARE we bring our insight as peers to women in need of support. Whether you're newly diagnosed yourself, want to support a friend, or are starting your life after treatment, we've been there too. All of our services are free. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @SHAREing: At SHARE we bring our insight as peers to women in need of support. Whether you're newly diagnosed yourself, want to support a friend, or are starting your life after treatment, we've been there too. All of our services are free. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @SHAREing: Our ovca helpline 866.537.4273 is staffed 7 days/week by peers who have faced an ovca diagnosis and are trained to answer questions, connect you with resources, or just listen. We can also match you with a peer who has a similar situation to you. En Español 212.719.4454 #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @ProactiveGenes: Proactive Genes is developing resources to help parents talk to their children about genetics and hereditary risk. #gyncsm |
| Debra Hallisey @advocatemomdad RT @SPBOCF: @ClearityFnd is a BFF of ours and their scientific expertise is exceptional. We love the way that expertise is delivered with deep understanding and concern for the person on the receiving end of the info--they take time to explain, and time to express caring too. #gyncsm |
| SHARE Cancer Support @SHARECancerSupt SHARE provides education programs about ovca research & strategies for wellbeing from top gyn-oncs & experts. Join online or in-person: https://t.co/yzz8LaYtfm, video library: https://t.co/UzSprgouOu. Upcoming webinar on Maintenance Therapy 9/25: https://t.co/2LgnkISdGj #gyncsm |
| Dee Sparacio @womenofteal RT @RobinSmrtPtient: At https://t.co/Vn6IUq0QAi you learn at your own speed about treatments, trials, and scientific developments related to your condition. #gyncsm |
| Christina Lizaso @btrfly12 I've been on @smart_patients as an individual and just really find it a great fit for me. #gyncsm |
| Debra Hallisey @advocatemomdad RT @ProactiveGenes: Proactive Genes is developing resources to help parents talk to their children about genetics and hereditary risk. #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @btrfly12: It used to bother me that there was so many different groups for cancers that don't have that many survivors. But it is actually a great thing. Everyone can find groups they really connect with. Everyone has different needs and all the orgs fill a piece of the puzzle. #gyncsm |
| Debra Hallisey @advocatemomdad RT @ProactiveGenes: Proactive Genes has a new resource called Mom’s Genes which is a children’s book that parents can use to start a conversation about family health history. #gyncsm |
| Dee Sparacio @womenofteal RT @RobinSmrtPtient: https://t.co/Vn6IUq0QAi members talk about everything, find answers, provide reassurance, and share experiences to help. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @RobinSmrtPtient: At https://t.co/Vn6IUq0QAi we aren't shy or squeamish about body parts, as Amanda commented on earlier. :-) #gyncsm |
| Frank Ingram, MD @Chucktowndoc For the recently diagnosed, your pathologist can be a source of information. We are happy to talk with patients about their pathology findings. Ask for a copy of your pathology report. It has the name of the doc who made your diagnosis and contact info for the lab. #gyncsm |
| Dee Sparacio @womenofteal RT @SHAREing: SHARE provides education programs about ovca research & strategies for wellbeing from top gyn-oncs & experts. Join online or in-person: https://t.co/yzz8LaYtfm, video library: https://t.co/UzSprgouOu. Upcoming webinar on Maintenance Therapy 9/25: https://t.co/2LgnkISdGj #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @Chucktowndoc: For the recently diagnosed, your pathologist can be a source of information. We are happy to talk with patients about their pathology findings. Ask for a copy of your pathology report. It has the name of the doc who made your diagnosis and contact info for the lab. #gyncsm |
| Debra Hallisey @advocatemomdad RT @RobinSmrtPtient: https://t.co/Vn6IUq0QAi is an online community where patients and their families learn from each other, sharing experiences and info. #gyncsm |
| @FacingOurRisk @FacingOurRisk For those with Spanish-speaking constituents, please feel free to share that FORCE will be holding a day of sessions (Oct. 19th) related to #HBOC completely in Spanish during our Joining FORCEs Against #HereditaryCancer Conference: https://t.co/VVIwDlfJj4 #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @Chucktowndoc: For the recently diagnosed, your pathologist can be a source of information. We are happy to talk with patients about their pathology findings. Ask for a copy of your pathology report. It has the name of the doc who made your diagnosis and contact info for the lab. #gyncsm |
| SHARE Cancer Support @SHARECancerSupt SHARE also has an online ovarian community where you can share experiences and get support peer anonymously, anywhere, anytime: https://t.co/XF3MzPU8nq #gyncsm Tweet at us if you have any other questions about SHARE's services! |
| Dee Sparacio @womenofteal @Chucktowndoc Thank you . I would guess woman may not think they could ask questions of their pathologist. #gyncsm |
| Debra Hallisey @advocatemomdad RT @FacingOurRisk: For those with Spanish-speaking constituents, please feel free to share that FORCE will be holding a day of sessions (Oct. 19th) related to #HBOC completely in Spanish during our Joining FORCEs Against #HereditaryCancer Conference: https://t.co/VVIwDlfJj4 #gyncsm |
| Dee Sparacio @womenofteal RT @FacingOurRisk: For those with Spanish-speaking constituents, please feel free to share that FORCE will be holding a day of sessions (Oct. 19th) related to #HBOC completely in Spanish during our Joining FORCEs Against #HereditaryCancer Conference: https://t.co/VVIwDlfJj4 #gyncsm |
| SHARE Cancer Support @SHARECancerSupt RT @womenofteal: We are excited to hold this Digital Health Fair as we celebrate the #gyncsm ‘s 5th Anniversary tonight. https://t.co/FGJaa1OBDR |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: @Chucktowndoc Thank you . I would guess woman may not think they could ask questions of their pathologist. #gyncsm |
 | CP Nerve Center @Cpnervecenter RT @SHAREing: SHARE provides education programs about ovca research & strategies for wellbeing from top gyn-oncs & experts. Join online or in-person: https://t.co/yzz8LaYtfm, video library: https://t.co/UzSprgouOu. Upcoming webinar on Maintenance Therapy 9/25: https://t.co/2LgnkISdGj #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @womenofteal: @Chucktowndoc Thank you . I would guess woman may not think they could ask questions of their pathologist. #gyncsm |
| Debra Hallisey @advocatemomdad RT @Chucktowndoc: For the recently diagnosed, your pathologist can be a source of information. We are happy to talk with patients about their pathology findings. Ask for a copy of your pathology report. It has the name of the doc who made your diagnosis and contact info for the lab. #gyncsm |
| SPBOC Foundation @SPBOCF Steps THrough OC is field-testing now but next month will begin serving people anywhere in the US with an exclusive focus on ovarian cancer and a special focus on communities where OC medical care and support resources are scarce. #gyncsm |
| Debra Hallisey @advocatemomdad RT @SHAREing: SHARE also has an online ovarian community where you can share experiences and get support peer anonymously, anywhere, anytime: https://t.co/XF3MzPU8nq #gyncsm Tweet at us if you have any other questions about SHARE's services! |
| Tanya Temkin @tanyaltee @RobinSmrtPtient Yesss😄 #gyncsm |
| Dee Sparacio @womenofteal RT @SPBOCF: Steps THrough OC is field-testing now but next month will begin serving people anywhere in the US with an exclusive focus on ovarian cancer and a special focus on communities where OC medical care and support resources are scarce. #gyncsm |
| Jillosopher, BSN, RN @jillosopher Selfishly, yes I admit it, I sometimes get weary of the support groups with survivors. It can be heartbreaking. Yes, I love them, but sometimes it's too hard. Yet another death, case of metastasis. Feel awful for admitting this, but it's true. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @Chucktowndoc: For the recently diagnosed, your pathologist can be a source of information. We are happy to talk with patients about their pathology findings. Ask for a copy of your pathology report. It has the name of the doc who made your diagnosis and contact info for the lab. #gyncsm |
| SHARE Cancer Support @SHARECancerSupt RT @FacingOurRisk: For those with Spanish-speaking constituents, please feel free to share that FORCE will be holding a day of sessions (Oct. 19th) related to #HBOC completely in Spanish during our Joining FORCEs Against #HereditaryCancer Conference: https://t.co/VVIwDlfJj4 #gyncsm |
| CP Nerve Center @Cpnervecenter RT @RobinSmrtPtient: At https://t.co/Vn6IUq0QAi you learn at your own speed about treatments, trials, and scientific developments related to your condition. #gyncsm |
| Debra Hallisey @advocatemomdad RT @SPBOCF: Steps THrough OC is field-testing now but next month will begin serving people anywhere in the US with an exclusive focus on ovarian cancer and a special focus on communities where OC medical care and support resources are scarce. #gyncsm |
| IamCervivor @IamCervivor RT @SPBOCF: Steps THrough OC is field-testing now but next month will begin serving people anywhere in the US with an exclusive focus on ovarian cancer and a special focus on communities where OC medical care and support resources are scarce. #gyncsm |
| Christina Lizaso @btrfly12 Can't wait to hear more about this! #gyncsm |
| Clearity Foundation @ClearityFnd As patients expressed a wider range of needs related to #ovariancancer, Clearity began providing informal support. Steps Through OC is a way to make that support accessible to anyone impacted by OC. @SPBOCF #gyncsm |
| Sarah Cassidy @CassidyFish2 Love the "piece of the puzzle" outlook! Work to do our best but remember it's not a competition. Together, we can keep the #patient as focus, improve quality of life and outcomes. #teamwork #gyncsm |
 | Genevieve Crane, MD, PhD @evemariecrane RT @Chucktowndoc: For the recently diagnosed, your pathologist can be a source of information. We are happy to talk with patients about their pathology findings. Ask for a copy of your pathology report. It has the name of the doc who made your diagnosis and contact info for the lab. #gyncsm |
| CP Nerve Center @Cpnervecenter RT @RobinSmrtPtient: https://t.co/Vn6IUq0QAi is an online community where patients and their families learn from each other, sharing experiences and info. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @CassidyFish2: Love the "piece of the puzzle" outlook! Work to do our best but remember it's not a competition. Together, we can keep the #patient as focus, improve quality of life and outcomes. #teamwork #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @SPBOCF: Steps THrough OC is field-testing now but next month will begin serving people anywhere in the US with an exclusive focus on ovarian cancer and a special focus on communities where OC medical care and support resources are scarce. #gyncsm |
| SPBOC Foundation @SPBOCF Steps Through OC is staffed by licensed counselors w OC expertise-they build a relationship with each participant, holding a 360° view of their clinical and overall life situation, providing individualized resources and anticipating future needs. #gyncsm |
 | Pamela Denise Price @PamelaD_Price RT @IamCervivor: While advocacy is our primary focus, we offer online support & networking via our private Facebook groups “I’m a Cervivor” and “HPV Related Cancer Community & Support.” In addition to “Cervivor Espanol” and “Cervivor Francias” #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm All, as we near the end of the hour, now is your chance to ask direct questions of the organizations who are here tonight and also please share your own favorite resources that you’ve found most helpful! #gyncsm |
| Jillosopher, BSN, RN @jillosopher @Chucktowndoc Wow! I never thought of communicating directly with the pathologist. Thanks for suggesting it. I was just re-examining my report today. #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @ClearityFnd: As patients expressed a wider range of needs related to #ovariancancer, Clearity began providing informal support. Steps Through OC is a way to make that support accessible to anyone impacted by OC. @SPBOCF #gyncsm |
| Dee Sparacio @womenofteal I feel that way too sometimes. I try to give myself a break and will go back to the groups a week or two later. Although I am always here for #gyncsm . |
| SPBOC Foundation @SPBOCF All Steps Through OC resources will be based in science, curated by professional staff and shared in tandem with one-to-one, live support, which is available to patients, survivors, family and caregivers as many times as they need it for as long as they want it. #gyncsm |
| Christina Lizaso @btrfly12 RT @CassidyFish2: Love the "piece of the puzzle" outlook! Work to do our best but remember it's not a competition. Together, we can keep the #patient as focus, improve quality of life and outcomes. #teamwork #gyncsm |
| Clearity Foundation @ClearityFnd RT @SPBOCF: Steps Through OC is staffed by licensed counselors w OC expertise-they build a relationship with each participant, holding a 360° view of their clinical and overall life situation, providing individualized resources and anticipating future needs. #gyncsm |
| Dee Sparacio @womenofteal RT @SPBOCF: Steps Through OC is staffed by licensed counselors w OC expertise-they build a relationship with each participant, holding a 360° view of their clinical and overall life situation, providing individualized resources and anticipating future needs. #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @jillosopher: @Chucktowndoc Wow! I never thought of communicating directly with the pathologist. Thanks for suggesting it. I was just re-examining my report today. #gyncsm |
 | Inspirata @InspirataInc RT @Chucktowndoc: For the recently diagnosed, your pathologist can be a source of information. We are happy to talk with patients about their pathology findings. Ask for a copy of your pathology report. It has the name of the doc who made your diagnosis and contact info for the lab. #gyncsm |
| Proactive Genes @ProactiveGenes RT @FacingOurRisk: @ProactiveGenes An excellent resource for the #hereditarycancer community! Thank you! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: All, as we near the end of the hour, now is your chance to ask direct questions of the organizations who are here tonight and also please share your own favorite resources that you’ve found most helpful! #gyncsm |
| Rick Boulay,MD @journeycancer September in GYN cancer awareness month. Happy GYN Cancer Awareness month everyone. Hope you're all wearing your teal! #gyncsm |
| Jillosopher, BSN, RN @jillosopher @womenofteal Absolutely, and I'll never leave my group. But I can't get all I need there, and I must take breaks like that, too. #gyncsm |
 | zack ackerman @ZackAckerman Dr_S_Ackerman: 9-year #CervicalCancer survivor Judy Parnitzke found the answers she needed during her cancer treatment at Ackerman Cancer Center. #gyncsm Click the link below to learn more about her story. https://t.co/4oM0B8xihB #cancerawareness |
| Robin Martinez @RobinSmrtPtient @helpsyhealth, yes, some groups like Helpsy and SmartPatients are broad-spectrum and tackle any issue. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @journeycancer: September in GYN cancer awareness month. Happy GYN Cancer Awareness month everyone. Hope you're all wearing your teal! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a starting point: https://t.co/VyXkdaQU8h |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @womenofteal: I feel that way too sometimes. I try to give myself a break and will go back to the groups a week or two later. Although I am always here for #gyncsm . |
 | Adam L. Booth, MD @ALBoothMD RT @Chucktowndoc: For the recently diagnosed, your pathologist can be a source of information. We are happy to talk with patients about their pathology findings. Ask for a copy of your pathology report. It has the name of the doc who made your diagnosis and contact info for the lab. #gyncsm |
| Dee Sparacio @womenofteal @journeycancer I've got teal toes! #gyncsm |
| Proactive Genes @ProactiveGenes This was fantastic! So happy to learn about so many wonderful groups. Thank you all for all you do for our community 💕 #gyncsm |
| Debra Hallisey @advocatemomdad RT @gyncsm: On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a starting point: On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a starting point: https://t.co/VyXkdaQU8h |
| Clearity Foundation @ClearityFnd Steps Through OC is a collaboration between The Clearity Foundation and @SPBOCF along with ovarian cancer counselors, expert advisors and others directly impacted by OC. #Gyncsm |
| Jillosopher, BSN, RN @jillosopher Peach is the color of endometrial cancer awareness. But I wear teal for all of gyn cancer awareness, too. #gyncsm |
| SPBOC Foundation @SPBOCF Thanks to the brilliance of @ClearityFnd AND the generosity of dozens of #ovariancancer patients, survivors, family, caregivers in telling their stories, Steps Through OC is designed to meet the kind of support needs described earlier. #gyncsm https://t.co/SamtoYBnN9 |
| Sangeeta (Helpsy) @sanHelpsy RT @RobinSmrtPtient: @helpsyhealth, yes, some groups like Helpsy and SmartPatients are broad-spectrum and tackle any issue. #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy RT @gyncsm: On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a starting point: On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a starting point: https://t.co/VyXkdaQU8h |
| Christina Lizaso @btrfly12 Tough one. Sometimes plugging them into a volunteer group that are doing things is a way to get them involved with support without calling it a "support group". Other thoughts? #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @gyncsm: On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a starting point: On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a starting point: https://t.co/VyXkdaQU8h |
| Ann Becker-Schutte @DrBeckerSchutte RT @btrfly12: Tough one. Sometimes plugging them into a volunteer group that are doing things is a way to get them involved with support without calling it a "support group". Other thoughts? #gyncsm |
| @FacingOurRisk @FacingOurRisk @temkins Sometimes just handing a pamphlet to a patient, or having them available, can be enough. When they're ready to look for more information, it will be there waiting for them. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a starting point: On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a starting point: https://t.co/VyXkdaQU8h |
| Ann Becker-Schutte @DrBeckerSchutte RT @FacingOurRisk: @temkins Sometimes just handing a pamphlet to a patient, or having them available, can be enough. When they're ready to look for more information, it will be there waiting for them. #gyncsm |
| Dee Sparacio @womenofteal @temkins Maybe share info with their caregiver or ask if she wants to speak to another woman dx with the same disease. #gyncsm |
| Debra Hallisey @advocatemomdad RT @womenofteal: @temkins Maybe share info with their caregiver or ask if she wants to speak to another woman dx with the same disease. #gyncsm |
| Rick Boulay,MD @journeycancer Support groups aren't for everyone. Just letting patients know that support is out there is sometimes all we can do. #GYNCSM |
| SPBOC Foundation @SPBOCF RT @ClearityFnd: Steps Through OC is a collaboration between The Clearity Foundation and @SPBOCF along with ovarian cancer counselors, expert advisors and others directly impacted by OC. #Gyncsm |
| Debra Hallisey @advocatemomdad RT @journeycancer: Support groups aren't for everyone. Just letting patients know that support is out there is sometimes all we can do. #GYNCSM |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @jillosopher: Peach is the color of endometrial cancer awareness. But I wear teal for all of gyn cancer awareness, too. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte TIL—there are so very many resources available to gyn cancer patients and survivors. #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: TIL—there are so very many resources available to gyn cancer patients and survivors. #gyncsm |
| Clearity Foundation @ClearityFnd RT @SPBOCF: Thanks to the brilliance of @ClearityFnd AND the generosity of dozens of #ovariancancer patients, survivors, family, caregivers in telling their stories, Steps Through OC is designed to meet the kind of support needs described earlier. #gyncsm https://t.co/SamtoYBnN9 |
| Dee Sparacio @womenofteal Hard to believe in August of 2013 I first met @btrfly12 on Twitter. And here we are 5 years later with a vibrant informative community and chat . Thank you Christina! #gyncsm |
| Tanya Temkin @tanyaltee I can relate to this. St Stage 4 I just feel too vulnerable sometimes. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @tanyaltee: I can relate to this. St Stage 4 I just feel too vulnerable sometimes. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We like to round out #gyncsm by asking everyone to share any closing thoughts. You can start your tweet with “TIL:” standing for Today I Learned #gyncsm |
| Robin Martinez @RobinSmrtPtient @Journeycancer, sometimes information resources serve as support groups too. #gyncsm |
| Robin Martinez @RobinSmrtPtient One SmartPatient said, "We came in as patients; we quickly became family." #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We like to round out #gyncsm by asking everyone to share any closing thoughts. You can start your tweet with “TIL:” standing for Today I Learned #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @womenofteal: Hard to believe in August of 2013 I first met @btrfly12 on Twitter. And here we are 5 years later with a vibrant informative community and chat . Thank you Christina! #gyncsm |
| Jillosopher, BSN, RN @jillosopher @temkins As a caregiver to passive parents, I learned that even when frustrating, I had to respect their reluctance to want info. And to try to anticipate needs. *sigh* #gyncsm |
| Rick Boulay,MD @journeycancer Me too. Wow Who knew?! #GYNCSM |
| Catherine Gegaris @cgegaris1 @jillosopher I understand,our church support group is so different,special. We do some really need things.I get to use my skills too,we do an educational offering every 3 months.#gyncsm |
| Cancer Hope Network @CancerHopeNet @womenofteal @btrfly12 Congratulations to you both! Thanks for creating such an informative, welcoming community. You're amazing! #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @jillosopher: @temkins As a caregiver to passive parents, I learned that even when frustrating, I had to respect their reluctance to want info. And to try to anticipate needs. *sigh* #gyncsm |
| Christina Lizaso @btrfly12 @womenofteal @temkins Written information is great. Walking away from an appointment with something to refer back to later, when you are ready. Paper can even word it that way - to assure that support and education are available when patient is ready. #gyncsm |
| Elixir Fund @elixirfund @womenofteal @btrfly12 Congratulations and thank you for all that you do #gyncsm |
| Dee Sparacio @womenofteal TIL that there are many organizations to support women dx with a gyn cancer. And that you can have a a health fair where your feet won't hurt from walking around. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @tanyaltee And I feel so bad when people with stage 4 come in and apologize for scaring the others. It's hard. <3 #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @btrfly12: @womenofteal @temkins Written information is great. Walking away from an appointment with something to refer back to later, when you are ready. Paper can even word it that way - to assure that support and education are available when patient is ready. #gyncsm |
| @FacingOurRisk @FacingOurRisk TIL: This has been a great chance to learn about other organizations and connect. We are all working toward the same goal of creating better outcomes and improving people's lives. I'm grateful that so many are working toward this cause. #gyncsm |
| SPBOC Foundation @SPBOCF RT @RobinSmrtPtient: One SmartPatient said, "We came in as patients; we quickly became family." #gyncsm |
| Christina Lizaso @btrfly12 TIL: That I still have things to learn about the great resources out there for #gyncsm patients and families :) So grateful to the organizations for making time for this "after-hours"! |
 | DaveisAliveAndKickn @AliveAndKicknDD RT @journeycancer: September in GYN cancer awareness month. Happy GYN Cancer Awareness month everyone. Hope you're all wearing your teal! #gyncsm |
| Pamela Denise Price @PamelaD_Price RT @IamCervivor: #Cervivor has both in person & online events. #CervivorSchool is an in person educational event to train advocates. We educate our advocates on #HPV #CervicalCancer & provide advocacy training & storytelling. #gyncsm |
| Dee Sparacio @womenofteal @CancerHopeNet @btrfly12 Thank for for joining us! Yours was the first org I reached out to when I was dx in 2005. #gyncsm |
| Cancer and Careers @CancerAndCareer RT @FacingOurRisk: TIL: TIL: This has been a great chance to learn about other organizations and connect. We are all working toward the same goal of creating better outcomes and improving people's lives. I'm grateful that so many are working toward this cause. #gyncsm |
| Cancer Hope Network @CancerHopeNet @FacingOurRisk @temkins Being there, providing support and resources without pressure...💙 #gyncsm |
 | RAKESH RANJAN @r_ranjan06 RT @DrBeckerSchutte: TIL—there are so very many resources available to gyn cancer patients and survivors. #gyncsm |
| SPBOC Foundation @SPBOCF RT @jillosopher: @temkins As a caregiver to passive parents, I learned that even when frustrating, I had to respect their reluctance to want info. And to try to anticipate needs. *sigh* #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy @temkins Also good to engage #Caregivers who can help with seeking out additional resources and support. #gyncsm #caregiver |
| Dee Sparacio @womenofteal @elixirfund @btrfly12 So glad you could join us Meg. See you next week at the Coalition meeting? #gyncsm |
| Robin Martinez @RobinSmrtPtient @womenofteal, yes, there were many great booths at this virtual health fair! #gyncsm |
| Elixir Fund @elixirfund @btrfly12 Thank you for providing us with the opportunity. #gyncsm |
| Jillosopher, BSN, RN @jillosopher TIL: 1. I'm not so alone. 2. There are so many resources availablele 3. I can't wait to give back. I'm ready. #gyncsm |
 | Sarah Temkin @temkins RT @sanHelpsy: @temkins Also good to engage #Caregivers who can help with seeking out additional resources and support. #gyncsm #caregiver |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone for the wonderful conversation and a big thank you to our health fair participants. Next #gyncsm chat: Wed October 10, 2018 at 9pmET on Managing Cancer Pain |
| GYN Cancer | #GYNCSM @gyncsm Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| IamCervivor @IamCervivor RT @gyncsm: Thanks to everyone for the wonderful conversation and a big thank you to our health fair participants. Next #gyncsm chat: Thanks to everyone for the wonderful conversation and a big thank you to our health fair participants. Next #gyncsm chat: Wed October 10, 2018 at 9pmET on Managing Cancer Pain |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte |
| Elixir Fund @elixirfund @womenofteal @btrfly12 Thank you and I will see you next week. #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @gyncsm: Thanks to everyone for the wonderful conversation and a big thank you to our health fair participants. Next #gyncsm chat: Thanks to everyone for the wonderful conversation and a big thank you to our health fair participants. Next #gyncsm chat: Wed October 10, 2018 at 9pmET on Managing Cancer Pain |
| Clearity Foundation @ClearityFnd Thank you @gyncsm for a wonderful tweet chat! If you’d like to learn more about The Clearity Foundation, please visit https://t.co/fbMEZ0J8x0! #gyncsm https://t.co/g3ktHKAyUS |
| Rick Boulay,MD @journeycancer Have a good night everyone! #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @gyncsm: Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| Christina Lizaso @btrfly12 Resource | Patient Guides @GYNCancer https://t.co/HfKK2h0FEi #gyncsm |
| IamCervivor @IamCervivor Thanks for such a great chat and health fair! #gyncsm |
| @FacingOurRisk @FacingOurRisk TIL: We have an amazing, passionate, motivated and dedicated cancer community of patients, supporters, caregivers, advocates and providers! #gyncsm |
| Rick Boulay,MD @journeycancer RT @gyncsm: Thanks to everyone for the wonderful conversation and a big thank you to our health fair participants. Next #gyncsm chat: Thanks to everyone for the wonderful conversation and a big thank you to our health fair participants. Next #gyncsm chat: Wed October 10, 2018 at 9pmET on Managing Cancer Pain |
| Catherine Gegaris @cgegaris1 @jillosopher We have 2 stage 4,5 stage 3 BC and 2 stage 3 Peritoneal 2 cures and 2 that just want to know more to help friends,plus our Pastor attends. #gyncsm |
| Dee Sparacio @womenofteal Legal tips for survivors https://t.co/i4izLQl5Qy @ConquerMag #gyncsm |
| Jillosopher, BSN, RN @jillosopher Goodnight #gyncsm Thanks for another great chat. Glad to be back after being too busy during nursing school. <3 |
| @FacingOurRisk @FacingOurRisk Thank you @gyncsm for putting together this digital health fair and bringing all these wonderful organizations togethers. Congratulations on 5 years! #gyncsm |
 | Morgan Newman @MiSs_SuE22 RT @IamCervivor: While advocacy is our primary focus, we offer online support & networking via our private Facebook groups “I’m a Cervivor” and “HPV Related Cancer Community & Support.” In addition to “Cervivor Espanol” and “Cervivor Francias” #gyncsm |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Morgan Newman @MiSs_SuE22 RT @IamCervivor: #Cervivor has both in person & online events. #CervivorSchool is an in person educational event to train advocates. We educate our advocates on #HPV #CervicalCancer & provide advocacy training & storytelling. #gyncsm |
| Dee Sparacio @womenofteal @jillosopher Thanks for being part of this community! #gyncsm |
| Catherine Gegaris @cgegaris1 Thank you,great first time for me! God's Peace to all and thanks for all you do #gyncsm |
| Dee Sparacio @womenofteal @FacingOurRisk @gyncsm Thank you for being here and sharing your resources with our community. #gyncsm |
| Cancer and Careers @CancerAndCareer @btrfly12 @womenofteal Thank you for organizing & having us join #gyncsm! It was a great opportunity to hear about the amazing resources & support that organizations, healthcare professionals, survivors and caregivers are providing on an every day basis. |
| Dee Sparacio @womenofteal @cgegaris1 Thanks for joining us. I hope you will join us again in the future. #gyncsm |
| SPBOC Foundation @SPBOCF TIL: The compassion in this #gyncsm community runs through every Tweet, and we especially appreciate the openness of patients/survivors willing to tell their stories. |
| Jillosopher, BSN, RN @jillosopher RT @womenofteal: Legal tips for survivors https://t.co/i4izLQl5Qy @ConquerMag #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Sangeeta (Helpsy) @sanHelpsy Thank you to the whole #gyncsm community and the wonderful moderators .@btrfly12 .@Womenofthewall .@ShannonWestin .@temkins .@journeycancer .@DrBeckerSchutte for a wonderful conversation! |
| GYN Cancer | #GYNCSM @gyncsm If you were new to #gyncsm and were "listening in", we hope you found this helpful and hope to see you on a chat in the coming months - 2nd Wed at 9pmET. It is not usually as fast-paced as tonight. We typically have an open discussion around 4-6 questions related to a main topic. |
| Dee Sparacio @womenofteal @CancerAndCareer @btrfly12 So glad you could join us ! We hope to chat about careers in November. Hope you can return to chat with us then. #gyncsm |
| Clearity Foundation @ClearityFnd RT @SPBOCF: TIL: TIL: The compassion in this #gyncsm community runs through every Tweet, and we especially appreciate the openness of patients/survivors willing to tell their stories. |
 | Andrea @BraveBosom RT @sanHelpsy: Thank you to the whole #gyncsm community and the wonderful moderators .@btrfly12 .@Womenofthewall .@ShannonWestin .@temkins .@journeycancer .@DrBeckerSchutte for a wonderful conversation! |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm : |
| SPBOC Foundation @SPBOCF Please stay tuned for more news and the official launch of Steps Through OC in October. We can't wait to make this resource available for anyone impacted by #ovariancancer. Meanwhile see https://t.co/SamtoYBnN9 for all the details. #gyncsm @gyncsm https://t.co/NDhixG7hjT |
| GYN Cancer | #GYNCSM @gyncsm There will be a post-chat summary on our blog https://t.co/oAfi7Me49e and we'll put links and information shared on the chat. We'll also provide the link to the full transcript. #gyncsm |
| Dee Sparacio @womenofteal Tonight's chat was a rapid pace - even for me. Check out some of the other transcripts from out topics page https://t.co/CFkfmPwvTx #gyncsm |
| David C. Norris, MD moved to Mastodon 🦣 @davidcnorrismd RT @gyncsm: There will be a post-chat summary on our blog https://t.co/oAfi7Me49e and we'll put links and information shared on the chat. We'll also provide the link to the full transcript. #gyncsm |
| Clearity Foundation @ClearityFnd RT @SPBOCF: Please stay tuned for more news and the official launch of Steps Through OC in October. We can't wait to make this resource available for anyone impacted by #ovariancancer. Meanwhile see https://t.co/SamtoYBnN9 for all the details. #gyncsm @gyncsm https://t.co/NDhixG7hjT |
| Dee Sparacio @womenofteal RT @SPBOCF: Please stay tuned for more news and the official launch of Steps Through OC in October. We can't wait to make this resource available for anyone impacted by #ovariancancer. Meanwhile see https://t.co/SamtoYBnN9 for all the details. #gyncsm @gyncsm https://t.co/NDhixG7hjT |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: Tonight's chat was a rapid pace - even for me. Check out some of the other transcripts from out topics page https://t.co/CFkfmPwvTx #gyncsm |
| SHARE Cancer Support @SHARECancerSupt TIL the power of a digital health fair, Thank you #gyncsm! I appreciate the compassion of the active gyn cancer twitter community and our sister organizations that participated tonight. We love working together to provide the best support possible for each individual! |
| GYN Cancer | #GYNCSM @gyncsm Goodnight and happy 5th anniversary to all #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: There will be a post-chat summary on our blog https://t.co/oAfi7Me49e and we'll put links and information shared on the chat. We'll also provide the link to the full transcript. #gyncsm |
| SPBOC Foundation @SPBOCF RT @womenofteal: Tonight's chat was a rapid pace - even for me. Check out some of the other transcripts from out topics page https://t.co/CFkfmPwvTx #gyncsm |
| SPBOC Foundation @SPBOCF RT @gyncsm: There will be a post-chat summary on our blog https://t.co/oAfi7Me49e and we'll put links and information shared on the chat. We'll also provide the link to the full transcript. #gyncsm |
 | Armani Chiropractic @ArmaniChiroprac RT @Dr_S_Ackerman: 9-year #CervicalCancer survivor Judy Parnitzke found the answers she needed during her cancer treatment at Ackerman Cancer Center. #gyncsm Click the link below to learn more about her story. https://t.co/jjXrU1uBFe |
| Dee Sparacio @womenofteal RT @gyncsm: Goodnight and happy 5th anniversary to all #gyncsm |
| Dee Sparacio @womenofteal Thank you to everyone who joined us tonight for our 5th Anniversary , Chat and Digital Health Fair. Your participation is so important to the health and success of our community. #gyncsm |
| SPBOC Foundation @SPBOCF RT @ClearityFnd: As patients expressed a wider range of needs related to #ovariancancer, Clearity began providing informal support. Steps Through OC is a way to make that support accessible to anyone impacted by OC. @SPBOCF #gyncsm |
#GynCSM content from Twitter.