#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Mike Kehoe @yytsnf RT @womenofteal: In 15 minutes my handle will be tweeting all things #gyncsm and Survivorship. If you're and cancer survivor, caregiver and are on now, stick around and join the convo. Check out our questions >>>https://t.co/h8fh5M6BVP |
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer care. I’ll be moderating as @gyncsm today. #gyncsm |
| Dee Sparacio @womenofteal @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Dee here! Dx with #ovca Stage3B 2005, recurrence 2008, Ovarian Cancer research advocate, blogger, co-Author of “100 Questions and Answers about Ovarian cancer” & co-moderator #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
| Dee Sparacio @womenofteal RT @gyncsm: If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their experiences and perspectives. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their experiences and perspectives. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
 | Sevtap Savas, PhD @savaslab RT @gyncsm: The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their experiences and perspectives. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Welcome @roberta_codemo - be sure to add #gyncsm to your tweets during the chat: "Nine year stage three endometrial cancer survivor turned patient navigator." |
| Sevtap Savas, PhD @savaslab RT @womenofteal: #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. #gyncsm |
| Sevtap Savas, PhD @savaslab #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm under Explore - Latest and include the hashtag in every tweet during the next hour to engage with others about this topic. You may need to refresh to see new tweets as they are added. |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information.#gyncsm |
| Sevtap Savas, PhD @savaslab RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm under Explore - Latest and include the hashtag in every tweet during the next hour to engage with others about this topic. You may need to refresh to see new tweets as they are added. |
| GYN Cancer | #GYNCSM @gyncsm We welcome all those joining in as well as those here to “listen in”. We'd love you to tweet #gyncsm so we know you are here and you can always tweet, DM or email us with questions/comments after the chat is over if you like. See our blog for info: https://t.co/nDbbZmWQI7 |
 | Michele E. Collins @Michele_w_1_L Michele from NJ. 8 year survivor of high grade serous ovarian cancer :) #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We welcome all those joining in as well as those here to “listen in”. We'd love you to tweet #gyncsm so we know you are here and you can always tweet, DM or email us with questions/comments after the chat is over if you like. See our blog for info: https://t.co/nDbbZmWQI7 |
| Dee Sparacio @womenofteal Thank you to all who have tweeted valuable information to our community during the past month using the #gyncsm hashtag and those who helped promote tonight's chat. |
| Christina Lizaso @btrfly12 RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| Dee Sparacio @womenofteal @Michele_w_1_L Hi Michele, So glad you are joining us tonight! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight on #gyncsm we’ll be discussing “Survivorship“. You can find the 7 Topic Questions we’ll cover on today’s chat on our #gyncsm blog: https://t.co/VQrT8mlFgy |
| Dee Sparacio @womenofteal RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Survivorship“. You can find the 7 Topic Questions we’ll cover on today’s chat on our #gyncsm blog: https://t.co/VQrT8mlFgy |
| Christina Lizaso @btrfly12 RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Survivorship“. You can find the 7 Topic Questions we’ll cover on today’s chat on our #gyncsm blog: https://t.co/VQrT8mlFgy |
 | Morgan Newman @MiSs_SuE22 RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Survivorship“. You can find the 7 Topic Questions we’ll cover on today’s chat on our #gyncsm blog: https://t.co/VQrT8mlFgy |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm uses a Topic format with T1: T2: etc. Please include the corresponding T#: at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. |
| Sevtap Savas, PhD @savaslab RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Survivorship“. You can find the 7 Topic Questions we’ll cover on today’s chat on our #gyncsm blog: https://t.co/VQrT8mlFgy |
| GYN Cancer | #GYNCSM @gyncsm Here comes our first topic T1:... #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm uses a Topic format with T1: T2: etc. Please include the corresponding T#: #gyncsm uses a Topic format with T1: T2: etc. Please include the corresponding T#: at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. |
 | Sarah Cassidy @CassidyFish2 RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Survivorship“. You can find the 7 Topic Questions we’ll cover on today’s chat on our #gyncsm blog: https://t.co/VQrT8mlFgy |
 | Christine in NYC @clamiroult Dx March 2022. Stage 4 ovarian cancer. NED as of Oct 2022. Still learning to navigate this new world. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T1: What comes to mind when you hear the term "survivorship"? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T1: T1: What comes to mind when you hear the term "survivorship"? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T1: T1: What comes to mind when you hear the term "survivorship"? #gyncsm |
| Sevtap Savas, PhD @savaslab RT @gyncsm: T1: T1: What comes to mind when you hear the term "survivorship"? #gyncsm |
| Sarah Cassidy @CassidyFish2 Happy New Year! I’m Sarah - was caregiver to my MIL and am proud to be part of the @CancerHopeNet team. #gyncsm |
| Dee Sparacio @womenofteal @CassidyFish2 @CancerHopeNet Hi Sarah- Always happy to see you when you join us! Happy New Year! #gyncsm |
| Morgan Newman @MiSs_SuE22 T1: I look at survivorship as a way of rewriting your life. Kind of a rebirth. I've changed a lot from the person I was before cancer and I can't thank @IamCervivor for helping me find that voice. I may still be dealing with the aftermath of cancer but I am living my way. #GYNCSM https://t.co/49DzZPjgla |
| Dee Sparacio @womenofteal T1 When I first heard “survivorship”-I thought of my health after treatment. What were the effects of treatments? How can I deal with the emotional and physical issues. Now,I know I was experiencing survivorship from when I was dx. #gyncsm |
| Michele E. Collins @Michele_w_1_L t1: when I hear the term survivorship what comes to my mind is your life being a cancer patient after frontline treatment ends. #gyncsm |
| Dee Sparacio @womenofteal This right here>>>> #gyncsm |
| Sarah Cassidy @CassidyFish2 @womenofteal @CancerHopeNet Hi Dee! Happy to be here. The #gyncsm are always so enlightening. |
| Morgan Newman @MiSs_SuE22 RT @womenofteal: T1 When I first heard “survivorship”-I thought of my health after treatment. What were the effects of treatments? How can I deal with the emotional and physical issues. Now,I know I was experiencing survivorship from when I was dx. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @MiSs_SuE22: T1: T1: I look at survivorship as a way of rewriting your life. Kind of a rebirth. I've changed a lot from the person I was before cancer and I can't thank @IamCervivor for helping me find that voice. I may still be dealing with the aftermath of cancer but I am living my way. #GYNCSM https://t.co/49DzZPjgla |
| Christine in NYC @clamiroult T1: I can’t relate to the word survivorship. At least not yet. Don’t feel like I survived anything. Feel like I’m in a fight that will last the rest of my life. #gyncsm |
| Christina Lizaso @btrfly12 T1: When I hear "suvivorship" I think about the day-to-day of dealing with a cancer-related diagnosis. The stuff that is more guided by peer input than healthcare professional input. But it is really all encompassing I guess. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T1: T1: When I hear "suvivorship" I think about the day-to-day of dealing with a cancer-related diagnosis. The stuff that is more guided by peer input than healthcare professional input. But it is really all encompassing I guess. #gyncsm |
| Christina Lizaso @btrfly12 I think that there are many that the term "survivorship" doesn't feel right for them. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: I think that there are many that the term "survivorship" doesn't feel right for them. #gyncsm |
 | Cancer Hope Network @CancerHopeNet @MiSs_SuE22 @IamCervivor Such a beautiful way of looking at #survivorship. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2: Do you seek out survivorship stories? What do you find helpful about patient stories? #gyncsm |
| Dee Sparacio @womenofteal T1 I've heard women on maintenance ( PARP/ Avastin) say they don't feel like they are done with treatment so they aren't in the survivorship phase yet. #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm : |
| Sevtap Savas, PhD @savaslab RT @gyncsm: T2: T2: Do you seek out survivorship stories? What do you find helpful about patient stories? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T2: T2: Do you seek out survivorship stories? What do you find helpful about patient stories? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2: T2: Do you seek out survivorship stories? What do you find helpful about patient stories? #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm : |
| Sarah Cassidy @CassidyFish2 T1 - as a caregiver, I always thought of survivorship as what happened "after the bell." I've come to learn that those 12 letters hold entire worlds of joy and pain and everything in between. #gyncsm |
| Dee Sparacio @womenofteal T2 When I was first diagnosed I reached out to @cancerhopenet to speak to a volunteer who was the same age and had the same diagnosis and was out 5 years from chemo. She gave me hope! So yes, I find survivorship stories helpful . #gyncsm |
| Dee Sparacio @womenofteal RT @CassidyFish2: T1 - as a caregiver, I always thought of survivorship as what happened "after the bell." I've come to learn that those 12 letters hold entire worlds of joy and pain and everything in between. #gyncsm |
| Christina Lizaso @btrfly12 T2: I always feel my time was well spent reading patient stories, but I am a big "power of story" believer. I don't think stories need to be labeled "inspirational" but do find them super helpful. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @womenofteal: T2 When I was first diagnosed I reached out to @cancerhopenet to speak to a volunteer who was the same age and had the same diagnosis and was out 5 years from chemo. She gave me hope! So yes, I find survivorship stories helpful . #gyncsm |
| Christina Lizaso @btrfly12 RT @CassidyFish2: T1 - as a caregiver, I always thought of survivorship as what happened "after the bell." I've come to learn that those 12 letters hold entire worlds of joy and pain and everything in between. #gyncsm |
| Morgan Newman @MiSs_SuE22 T2: Absolutely 100%. In the work we do at @IamCervivor it is imperative we elevate the stories of patients and survivors because not everyone experiences the same cancer journey but someone may identify with a part of your story that can help them. #GYNCSM https://t.co/rq4oWtwJua |
| Christina Lizaso @btrfly12 RT @MiSs_SuE22: T1: T1: I look at survivorship as a way of rewriting your life. Kind of a rebirth. I've changed a lot from the person I was before cancer and I can't thank @IamCervivor for helping me find that voice. I may still be dealing with the aftermath of cancer but I am living my way. #GYNCSM https://t.co/49DzZPjgla |
| Cancer Hope Network @CancerHopeNet So very happy that you found hope. And so fortunate that you have paid that hope forward to so many! Survivor stories matter. #gyncsm |
| Michele E. Collins @Michele_w_1_L t2: when I was first diagnosed I couldn't read enough survivor stories. I would try to compare each story to my own & try to find similarities which would indicate a potential positive outcome for me. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T2: T2: I always feel my time was well spent reading patient stories, but I am a big "power of story" believer. I don't think stories need to be labeled "inspirational" but do find them super helpful. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @MiSs_SuE22: T2: T2: Absolutely 100%. In the work we do at @IamCervivor it is imperative we elevate the stories of patients and survivors because not everyone experiences the same cancer journey but someone may identify with a part of your story that can help them. #GYNCSM https://t.co/rq4oWtwJua |
| Morgan Newman @MiSs_SuE22 RT @btrfly12: T2: T2: I always feel my time was well spent reading patient stories, but I am a big "power of story" believer. I don't think stories need to be labeled "inspirational" but do find them super helpful. #gyncsm |
| Morgan Newman @MiSs_SuE22 RT @womenofteal: T2 When I was first diagnosed I reached out to @cancerhopenet to speak to a volunteer who was the same age and had the same diagnosis and was out 5 years from chemo. She gave me hope! So yes, I find survivorship stories helpful . #gyncsm |
| Morgan Newman @MiSs_SuE22 RT @CassidyFish2: T1 - as a caregiver, I always thought of survivorship as what happened "after the bell." I've come to learn that those 12 letters hold entire worlds of joy and pain and everything in between. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @Michele_w_1_L: t2: t2: when I was first diagnosed I couldn't read enough survivor stories. I would try to compare each story to my own & try to find similarities which would indicate a potential positive outcome for me. #gyncsm |
| Christina Lizaso @btrfly12 T2: Yes, I feel that you never know what part of your story may be someone else's lifeline. Appreciate so much those who take the risk to share and org's who value and promote patient stories. #gyncsm |
| Morgan Newman @MiSs_SuE22 RT @btrfly12: T2: T2: Yes, I feel that you never know what part of your story may be someone else's lifeline. Appreciate so much those who take the risk to share and org's who value and promote patient stories. #gyncsm |
| Christina Lizaso @btrfly12 RT @Michele_w_1_L: t2: t2: when I was first diagnosed I couldn't read enough survivor stories. I would try to compare each story to my own & try to find similarities which would indicate a potential positive outcome for me. #gyncsm |
| Dee Sparacio @womenofteal Yes, others stories and how they dealt with what comes with being dx with cancer is helpful! #gyncsm |
| Sevtap Savas, PhD @savaslab RT @btrfly12: T2: T2: Yes, I feel that you never know what part of your story may be someone else's lifeline. Appreciate so much those who take the risk to share and org's who value and promote patient stories. #gyncsm |
| Dee Sparacio @womenofteal RT @Michele_w_1_L: t2: t2: when I was first diagnosed I couldn't read enough survivor stories. I would try to compare each story to my own & try to find similarities which would indicate a potential positive outcome for me. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T2: T2: Yes, I feel that you never know what part of your story may be someone else's lifeline. Appreciate so much those who take the risk to share and org's who value and promote patient stories. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @womenofteal: Yes, others stories and how they dealt with what comes with being dx with cancer is helpful! #gyncsm |
| Sarah Cassidy @CassidyFish2 I believe there's incredible power in patient stories - for the new survivors, who can find inspiration and a roadmap through their treatments - and for the survivors telling the stories. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T3: Which effects of survivorship - i.e. physical, emotional, social and financial - have impacted your life most? #gyncsm |
| Sevtap Savas, PhD @savaslab RT @CassidyFish2: I believe there's incredible power in patient stories - for the new survivors, who can find inspiration and a roadmap through their treatments - and for the survivors telling the stories. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T3: T3: Which effects of survivorship - i.e. physical, emotional, social and financial - have impacted your life most? #gyncsm |
| Morgan Newman @MiSs_SuE22 RT @CassidyFish2: I believe there's incredible power in patient stories - for the new survivors, who can find inspiration and a roadmap through their treatments - and for the survivors telling the stories. #gyncsm |
| Christine in NYC @clamiroult T2: I didn’t know survivorship stories existed. Now that I do, I honestly wouldn’t know where to find them and really don’t have the energy to seek them out. #gyncsm |
| Dee Sparacio @womenofteal RT @CassidyFish2: I believe there's incredible power in patient stories - for the new survivors, who can find inspiration and a roadmap through their treatments - and for the survivors telling the stories. #gyncsm |
 | Tambre Leighn, MA, CPC she/her @tambreleighn RT @womenofteal: T1 When I first heard “survivorship”-I thought of my health after treatment. What were the effects of treatments? How can I deal with the emotional and physical issues. Now,I know I was experiencing survivorship from when I was dx. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T3: T3: Which effects of survivorship - i.e. physical, emotional, social and financial - have impacted your life most? #gyncsm |
| Christina Lizaso @btrfly12 @CassidyFish2 #gyncsm I love the point about the impact of the story on the person sharing their truth. That it can be an important impact them too. |
| Dee Sparacio @womenofteal Here are some ovarian cancer survivor stories @ocrahope https://t.co/Du21PXqlca #gyncsm or these https://t.co/72i4zogBQt @NOCC_National |
| Morgan Newman @MiSs_SuE22 A3: The emotional is number 1. I still deal with a bit of PTSD. The physical with post-treatment side effects that will never go away. The social to really focus on what is important in my relationships and friendships going forward. And it was financial for a long time. #GYNCSM https://t.co/yCke1xEgkF |
| Christine in NYC @clamiroult T3: I would add a new category - mental. I’m a much more negative person than I was before. My mental health definitely suffered. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @MiSs_SuE22: A3: A3: The emotional is number 1. I still deal with a bit of PTSD. The physical with post-treatment side effects that will never go away. The social to really focus on what is important in my relationships and friendships going forward. And it was financial for a long time. #GYNCSM https://t.co/yCke1xEgkF |
| Sevtap Savas, PhD @savaslab RT @womenofteal: Here are some ovarian cancer survivor stories @ocrahope https://t.co/Du21PXqlca #gyncsm or these https://t.co/72i4zogBQt @NOCC_National |
| Sarah Cassidy @CassidyFish2 @btrfly12 There's such power in being seen. And having an opportunity to share the reality - not just the pretty, inspirational parts of the story - can be so cathartic. #gyncsm |
| Dee Sparacio @womenofteal RT @MiSs_SuE22: A3: A3: The emotional is number 1. I still deal with a bit of PTSD. The physical with post-treatment side effects that will never go away. The social to really focus on what is important in my relationships and friendships going forward. And it was financial for a long time. #GYNCSM https://t.co/yCke1xEgkF |
| Sevtap Savas, PhD @savaslab RT @clamiroult: T2: T2: I didn’t know survivorship stories existed. Now that I do, I honestly wouldn’t know where to find them and really don’t have the energy to seek them out. #gyncsm |
| Christina Lizaso @btrfly12 RT @CassidyFish2: @btrfly12 There's such power in being seen. And having an opportunity to share the reality - not just the pretty, inspirational parts of the story - can be so cathartic. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @gyncsm: T3: T3: Which effects of survivorship - i.e. physical, emotional, social and financial - have impacted your life most? #gyncsm |
| Dee Sparacio @womenofteal T3 For me the physical and emotional were the worst. Chemo brain was real for me and impacted me emotionally as well. #gyncsm |
| Michele E. Collins @Michele_w_1_L t3: I would say the physical effects of survivorship have been the toughest. Between surgical menopause & chemo after effects, my body has changed a lot. #gyncsm |
 | Martina Murphy, MD @DrMMurphy @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Joining late! Martina here - medical gyn oncologist @UFHealthCancer. Love learning from all of you l. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4: What are some of the types of support patients need at diagnosis, during treatment, and after? What tools or support have helped you with your survivorship? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T4: T4: What are some of the types of support patients need at diagnosis, during treatment, and after? What tools or support have helped you with your survivorship? #gyncsm |
| Sevtap Savas, PhD @savaslab RT @womenofteal: T3 For me the physical and emotional were the worst. Chemo brain was real for me and impacted me emotionally as well. #gyncsm |
| Dee Sparacio @womenofteal T3 Yes , so many women dx before menopause so the effects after surgery are instant and tough to handle along with a cancer dx and treatment effects. #gyncsm |
| Dee Sparacio @womenofteal @DrMMurphy @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte @UFHealthCancer Hi Martina, Glad you were able to join us tonight. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4: T4: What are some of the types of support patients need at diagnosis, during treatment, and after? What tools or support have helped you with your survivorship? #gyncsm |
| Morgan Newman @MiSs_SuE22 @womenofteal So much yes... I still struggle to come up with words and sometimes my thought processes. #GYNCSM |
| Sevtap Savas, PhD @savaslab RT @womenofteal: T3 Yes , so many women dx before menopause so the effects after surgery are instant and tough to handle along with a cancer dx and treatment effects. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @gyncsm: T4: T4: What are some of the types of support patients need at diagnosis, during treatment, and after? What tools or support have helped you with your survivorship? #gyncsm |
| Christina Lizaso @btrfly12 T4: Some organizations with tools I hear good things about are @afreshchapter @livestrong @stepsthrough The amount of resources can be overwhelming but glad there are a variety. Disease-specific org's can help with recommendations #gyncsm |
| Sevtap Savas, PhD @savaslab RT @Michele_w_1_L: t3: t3: I would say the physical effects of survivorship have been the toughest. Between surgical menopause & chemo after effects, my body has changed a lot. #gyncsm |
| Dee Sparacio @womenofteal @MiSs_SuE22 There were times early on when I would actually cry because I couldn't think of a word. My family helps fill in the words as I decribe what I want to say. #gyncsm |
| Martina Murphy, MD @DrMMurphy I love this so much @MiSs_SuE22. What a beautiful, powerful perspective. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T4: T4: Some organizations with tools I hear good things about are @afreshchapter @livestrong @stepsthrough The amount of resources can be overwhelming but glad there are a variety. Disease-specific org's can help with recommendations #gyncsm |
| Morgan Newman @MiSs_SuE22 T4: I would have loved to have a community like @IamCervivor sooner than I did (after treatment ended). I would have loved financial support and more information on what questions to ask at appointments, etc. #GYNCSM https://t.co/wEXu4NWSXX |
| Christina Lizaso @btrfly12 T4: @hystersisters is a resource for going through menopause. Peer support can be such a great resource and I wish more physician practices would curate one's to recommend to pts - or at least suggest in general. #gyncsm |
| Morgan Newman @MiSs_SuE22 RT @womenofteal: T3 Yes , so many women dx before menopause so the effects after surgery are instant and tough to handle along with a cancer dx and treatment effects. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @MiSs_SuE22: T4: T4: I would have loved to have a community like @IamCervivor sooner than I did (after treatment ended). I would have loved financial support and more information on what questions to ask at appointments, etc. #GYNCSM https://t.co/wEXu4NWSXX |
| Martina Murphy, MD @DrMMurphy RT @womenofteal: Here are some ovarian cancer survivor stories @ocrahope https://t.co/Du21PXqlca #gyncsm or these https://t.co/72i4zogBQt @NOCC_National |
| Cancer Hope Network @CancerHopeNet We're admittedly a bit biased, but connecting with a peer support mentor who truly understands can be helpful. Our survivor volunteers (like @womenofteal!) can help patients find hope - and help navigating during and after treatment. #gyncsm |
| Christine in NYC @clamiroult T4: Ways to handle the added financial stress seems to be lacking. Resources and options to cover costs are a godsend. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @btrfly12: T4: @hystersisters is a resource for going through menopause. Peer support can be such a great resource and I wish more physician practices would curate one's to recommend to pts - or at least suggest in general. #gyncsm |
| Morgan Newman @MiSs_SuE22 @womenofteal I hear you! I would actually snap my fingers while I was thinking...you know, hoping that would help but I just added to the pressure. #GYNCSM |
| Michele E. Collins @Michele_w_1_L t4: at dx patients should be made aware if their hospital has a patient to patient peer program. Speaking w a survivor who went through it & can provide hope was instrumental for me & the reason I am a P2P volunteer. @MSKCancerCenter + @SHAREing #gyncsm |
| Morgan Newman @MiSs_SuE22 RT @btrfly12: T4: @hystersisters is a resource for going through menopause. Peer support can be such a great resource and I wish more physician practices would curate one's to recommend to pts - or at least suggest in general. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @Michele_w_1_L: t4: t4: at dx patients should be made aware if their hospital has a patient to patient peer program. Speaking w a survivor who went through it & can provide hope was instrumental for me & the reason I am a P2P volunteer. @MSKCancerCenter + @SHAREing #gyncsm |
 | Codemo Writing Services @roberta_codemo @gyncsm #gyncsm T3. I've had to deal with a lot of health issues the past nine years. It's been so bad my gyn oncologist just now let me graduate to every six month follow-ups. He's been watching me closely for potential recurrences. |
| Morgan Newman @MiSs_SuE22 RT @CancerHopeNet: We're admittedly a bit biased, but connecting with a peer support mentor who truly understands can be helpful. Our survivor volunteers (like @womenofteal!) can help patients find hope - and help navigating during and after treatment. #gyncsm |
| Dee Sparacio @womenofteal T4 Emotional -support groups are so important. or peer to peer support. Almost like having a mentor through the journey. Physical - physical therapy might help build strength esp Pelvic floor therapy. @cancerdotnet has a good resource page https://t.co/9HLIGtrjIb #gyncsm |
| Dee Sparacio @womenofteal RT @MiSs_SuE22: T4: T4: I would have loved to have a community like @IamCervivor sooner than I did (after treatment ended). I would have loved financial support and more information on what questions to ask at appointments, etc. #GYNCSM https://t.co/wEXu4NWSXX |
| Dee Sparacio @womenofteal RT @btrfly12: T4: @hystersisters is a resource for going through menopause. Peer support can be such a great resource and I wish more physician practices would curate one's to recommend to pts - or at least suggest in general. #gyncsm |
| Dee Sparacio @womenofteal RT @CancerHopeNet: We're admittedly a bit biased, but connecting with a peer support mentor who truly understands can be helpful. Our survivor volunteers (like @womenofteal!) can help patients find hope - and help navigating during and after treatment. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Love all these great resources #gyncsm - Keep sharing throughout the chat. Here comes Topic 5 (T5:)... |
| Morgan Newman @MiSs_SuE22 RT @womenofteal: T4 Emotional -support groups are so important. or peer to peer support. Almost like having a mentor through the journey. Physical - physical therapy might help build strength esp Pelvic floor therapy. @cancerdotnet has a good resource page https://t.co/9HLIGtrjIb #gyncsm |
| Dee Sparacio @womenofteal RT @Michele_w_1_L: t4: t4: at dx patients should be made aware if their hospital has a patient to patient peer program. Speaking w a survivor who went through it & can provide hope was instrumental for me & the reason I am a P2P volunteer. @MSKCancerCenter + @SHAREing #gyncsm |
| Tambre Leighn, MA, CPC she/her @tambreleighn RT @womenofteal: T4 Emotional -support groups are so important. or peer to peer support. Almost like having a mentor through the journey. Physical - physical therapy might help build strength esp Pelvic floor therapy. @cancerdotnet has a good resource page https://t.co/9HLIGtrjIb #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T4 Emotional -support groups are so important. or peer to peer support. Almost like having a mentor through the journey. Physical - physical therapy might help build strength esp Pelvic floor therapy. @cancerdotnet has a good resource page https://t.co/9HLIGtrjIb #gyncsm |
| Sevtap Savas, PhD @savaslab RT @womenofteal: T4 Emotional -support groups are so important. or peer to peer support. Almost like having a mentor through the journey. Physical - physical therapy might help build strength esp Pelvic floor therapy. @cancerdotnet has a good resource page https://t.co/9HLIGtrjIb #gyncsm |
| Dee Sparacio @womenofteal RT @roberta_codemo: @gyncsm #gyncsm T3. I've had to deal with a lot of health issues the past nine years. It's been so bad my gyn oncologist just now let me graduate to every six month follow-ups. He's been watching me closely for potential recurrences. |
| Dee Sparacio @womenofteal RT @gyncsm: Love all these great resources #gyncsm - Keep sharing throughout the chat. Here comes Topic 5 (T5:)... |
| Sarah Cassidy @CassidyFish2 @Michele_w_1_L @MSKCancerCenter @SHAREing Such a wonderful gift you're paying forward, Michele. <3 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T5: Do you experience a fear of recurrence? If so, what do you find helpful when dealing with that feeling? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T5: T5: Do you experience a fear of recurrence? If so, what do you find helpful when dealing with that feeling? #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm T4: NOCC financial support information for #ovariancancer https://t.co/JoGibrQ4pr |
| Sevtap Savas, PhD @savaslab RT @btrfly12: #gyncsm T4: #gyncsm T4: NOCC financial support information for #ovariancancer https://t.co/JoGibrQ4pr |
| Morgan Newman @MiSs_SuE22 T5.1: I've had one metastatic recurrence and I've feared it every day since. It's gotten a little better over the years but while I'm waiting to see if Friday's scan provides me with year number 7 of NED status...I have a ton of anxiety. #GYNCSM |
| Morgan Newman @MiSs_SuE22 T5.2: I've found breathing exercises, meditation, reading, photography, and in all honesty - burying myself in work to help in reducing the anxiety. #GYNCSM https://t.co/GqJk8mYs27 |
| Dee Sparacio @womenofteal @clamiroult @cancerdotnet has a good list of org that help with financial info. https://t.co/R9JjiQJ2TJ As does @CancerAndCareer https://t.co/ykDnrPO8cw #gyncsm |
| Michele E. Collins @Michele_w_1_L t5: the fear of recurrence has never gone away but has lessened. I try to keep in mind the women I know who have recurred & are still here many years later. A lot of mental gymnastics 😀 #gyncsm |
| Morgan Newman @MiSs_SuE22 RT @btrfly12: #gyncsm T4: #gyncsm T4: NOCC financial support information for #ovariancancer https://t.co/JoGibrQ4pr |
| Sevtap Savas, PhD @savaslab RT @Michele_w_1_L: t5: t5: the fear of recurrence has never gone away but has lessened. I try to keep in mind the women I know who have recurred & are still here many years later. A lot of mental gymnastics 😀 #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T5: T5: Do you experience a fear of recurrence? If so, what do you find helpful when dealing with that feeling? #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm T4: #gyncsm T4: NOCC financial support information for #ovariancancer https://t.co/JoGibrQ4pr |
| Sevtap Savas, PhD @savaslab RT @womenofteal: @clamiroult @cancerdotnet has a good list of org that help with financial info. https://t.co/R9JjiQJ2TJ As does @CancerAndCareer https://t.co/ykDnrPO8cw #gyncsm |
| Sarah Cassidy @CassidyFish2 @clamiroult So true! @TriageCancer has helpful info and https://t.co/jwjkb35EWE provides searchable #financial resources. #gyncsm |
| Dee Sparacio @womenofteal RT @MiSs_SuE22: T5.2: T5.2: I've found breathing exercises, meditation, reading, photography, and in all honesty - burying myself in work to help in reducing the anxiety. #GYNCSM https://t.co/GqJk8mYs27 |
| Martina Murphy, MD @DrMMurphy RT @womenofteal: @clamiroult @cancerdotnet has a good list of org that help with financial info. https://t.co/R9JjiQJ2TJ As does @CancerAndCareer https://t.co/ykDnrPO8cw #gyncsm |
| Christine in NYC @clamiroult T5: I would describe it as less a fear of it coming back and more a fear that it never left. Despite being NED I still can’t convince myself it’s gone- especially since I still feel so sick and exhausted all the time (possibly due to PARP drugs.) #gyncsm |
| Morgan Newman @MiSs_SuE22 RT @womenofteal: @clamiroult @cancerdotnet has a good list of org that help with financial info. https://t.co/R9JjiQJ2TJ As does @CancerAndCareer https://t.co/ykDnrPO8cw #gyncsm |
| Morgan Newman @MiSs_SuE22 RT @CassidyFish2: @clamiroult So true! @TriageCancer has helpful info and https://t.co/jwjkb35EWE provides searchable #financial resources. #gyncsm |
| Dee Sparacio @womenofteal RT @Michele_w_1_L: t5: t5: the fear of recurrence has never gone away but has lessened. I try to keep in mind the women I know who have recurred & are still here many years later. A lot of mental gymnastics 😀 #gyncsm |
| Dee Sparacio @womenofteal RT @CassidyFish2: @clamiroult So true! @TriageCancer has helpful info and https://t.co/jwjkb35EWE provides searchable #financial resources. #gyncsm |
| Christina Lizaso @btrfly12 T5: Learning more about something helps me address my fears. We recently covered the topic of recurrence on a #gyncsm chat. Here's the recap with topic links for further reading: https://t.co/Gm5EZzm1M4 |
| Sevtap Savas, PhD @savaslab RT @btrfly12: T5: T5: Learning more about something helps me address my fears. We recently covered the topic of recurrence on a #gyncsm chat. Here's the recap with topic links for further reading: https://t.co/Gm5EZzm1M4 |
| Christina Lizaso @btrfly12 MT #gyncsm @roberta_codemo Replying to @gyncsm "T5: I've had unrelenting abdominal/pelvic pain since my diagnosis nine years ago. The fear of recurrence is always in the back of my mind. I have an appt scheduled in February and have some concerns." |
| Christina Lizaso @btrfly12 RT @clamiroult: T5: T5: I would describe it as less a fear of it coming back and more a fear that it never left. Despite being NED I still can’t convince myself it’s gone- especially since I still feel so sick and exhausted all the time (possibly due to PARP drugs.) #gyncsm |
| Dee Sparacio @womenofteal T5 Even so many years out from my recurrence, I sometimes feel the Fear and uncertainty about the future. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T5: T5: Learning more about something helps me address my fears. We recently covered the topic of recurrence on a #gyncsm chat. Here's the recap with topic links for further reading: https://t.co/Gm5EZzm1M4 |
| Morgan Newman @MiSs_SuE22 @btrfly12 @roberta_codemo @gyncsm Sending you all the positive thoughts to you! <3 #GYNCSM |
| GYN Cancer | #GYNCSM @gyncsm T6: Do you ever feel survivors' guilt? How have you dealt with that? #gyncsm |
| Sevtap Savas, PhD @savaslab RT @gyncsm: T6: T6: Do you ever feel survivors' guilt? How have you dealt with that? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T6: T6: Do you ever feel survivors' guilt? How have you dealt with that? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T6: T6: Do you ever feel survivors' guilt? How have you dealt with that? #gyncsm |
| Morgan Newman @MiSs_SuE22 T6: Definitely. I have often wondered why I am still here and others aren't. I've questioned the "what ifs". I understand things are out of my control but I can help share my story and others to prevent others from going through this. Miss these two fiercely. #GYNCSM https://t.co/NXVkq6ZVeH |
| Christina Lizaso @btrfly12 T6: When you participate in disease communities, loss comes with it... And it is okay to step away from time to time and recharge #gyncsm |
| Sevtap Savas, PhD @savaslab RT @MiSs_SuE22: T6: T6: Definitely. I have often wondered why I am still here and others aren't. I've questioned the "what ifs". I understand things are out of my control but I can help share my story and others to prevent others from going through this. Miss these two fiercely. #GYNCSM https://t.co/NXVkq6ZVeH |
| Morgan Newman @MiSs_SuE22 RT @btrfly12: T6: T6: When you participate in disease communities, loss comes with it... And it is okay to step away from time to time and recharge #gyncsm |
| Michele E. Collins @Michele_w_1_L t6: I do feel survivor's guilt. I honor the friends I've lost by continuing all of my advocacy work. I keep them all in my heart & I always preach to others that aging is a gift. #gyncsm |
| Dee Sparacio @womenofteal RT @MiSs_SuE22: T6: T6: Definitely. I have often wondered why I am still here and others aren't. I've questioned the "what ifs". I understand things are out of my control but I can help share my story and others to prevent others from going through this. Miss these two fiercely. #GYNCSM https://t.co/NXVkq6ZVeH |
| Dee Sparacio @womenofteal Excellent advice. #gyncsm |
| Christine in NYC @clamiroult T6: More a sense of heartbreak for those less fortunate. I can’t fathom going through the mental, physical, and emotional fight that chemo and/or radiation requires only to have it not spare your life. #gyncsm |
| Dee Sparacio @womenofteal RT @Michele_w_1_L: t6: t6: I do feel survivor's guilt. I honor the friends I've lost by continuing all of my advocacy work. I keep them all in my heart & I always preach to others that aging is a gift. #gyncsm |
| Christina Lizaso @btrfly12 T6: When I worked at a cancer org, I had a drawer with scraps, notes, memories, memorial programs. I carry those stories with me still. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T7: What has been your experience with follow-up and long-term care? After initial treatment, did you receive a survivorship plan? If so, how has it helped you during your survivorship? #gyncsm |
| Sevtap Savas, PhD @savaslab RT @Michele_w_1_L: t6: t6: I do feel survivor's guilt. I honor the friends I've lost by continuing all of my advocacy work. I keep them all in my heart & I always preach to others that aging is a gift. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T7: T7: What has been your experience with follow-up and long-term care? After initial treatment, did you receive a survivorship plan? If so, how has it helped you during your survivorship? #gyncsm |
| Sevtap Savas, PhD @savaslab RT @gyncsm: T7: T7: What has been your experience with follow-up and long-term care? After initial treatment, did you receive a survivorship plan? If so, how has it helped you during your survivorship? #gyncsm |
| Dee Sparacio @womenofteal T6 A few years ago 3 women in my support group passed from OC in one month. That hit me hard and I certainly felt strong survivors guilt after that. My advocacy work helps that feeling to lessen and I feel like I am giving back. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T6: T6: When I worked at a cancer org, I had a drawer with scraps, notes, memories, memorial programs. I carry those stories with me still. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @womenofteal: T6 A few years ago 3 women in my support group passed from OC in one month. That hit me hard and I certainly felt strong survivors guilt after that. My advocacy work helps that feeling to lessen and I feel like I am giving back. #gyncsm |
| Morgan Newman @MiSs_SuE22 T7: I actually took that into my own hands after discovering a local group, @ABCancer, and started regularly attending exercise classes which led to meeting more with the community, and now I serve on their Board of Directors! #GYNCSM https://t.co/xDMWwGgJup |
| Dee Sparacio @womenofteal RT @gyncsm: T7: T7: What has been your experience with follow-up and long-term care? After initial treatment, did you receive a survivorship plan? If so, how has it helped you during your survivorship? #gyncsm |
| Christina Lizaso @btrfly12 T7: Many years ago my mom didn't receive much if anything of a follow-up plan. Still not sure her current monitoring is "best practice". I'd like to think survivorship plans are more common but feel still a ways to go with primary care handling survivors. #gyncsm |
| Dee Sparacio @womenofteal RT @MiSs_SuE22: T7: T7: I actually took that into my own hands after discovering a local group, @ABCancer, and started regularly attending exercise classes which led to meeting more with the community, and now I serve on their Board of Directors! #GYNCSM https://t.co/xDMWwGgJup |
| Dee Sparacio @womenofteal T7 I was dx 15+ years ago, before plans were shared with patients. I am seen by an Adv Practice nurse as part of a survivorship program now. We talk & decide together what my follow-up should be based on guidelines. I can always call if I feel something not right. #gyncsm. |
| GYN Cancer | #GYNCSM @gyncsm Already time for closing thoughts! We use the last few minutes of the chat to wrap up and share with each other what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for “Today I Learned”. #gyncsm |
| Morgan Newman @MiSs_SuE22 @womenofteal Oofta, yes... back to back losses are definitely something that shakes us to our cores. Somehow we all dig our heels in, find the strength, and carry their legacies on with us through our work. #GYNCSM |
| Morgan Newman @MiSs_SuE22 RT @womenofteal: T7 I was dx 15+ years ago, before plans were shared with patients. I am seen by an Adv Practice nurse as part of a survivorship program now. We talk & decide together what my follow-up should be based on guidelines. I can always call if I feel something not right. #gyncsm. |
| Michele E. Collins @Michele_w_1_L t7: I feel that many hospitals lack adequate survivorship programs & survivors need to be better supported. I have had to find my own way & advocate for myself. We should be assigned "survivorship doulas"! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Already time for closing thoughts! We use the last few minutes of the chat to wrap up and share with each other what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for “Today I Learned”. #gyncsm |
| Sevtap Savas, PhD @savaslab @gyncsm #gyncsm https://t.co/7EosSzBtD2 |
| Christina Lizaso @btrfly12 T7: @SGO_org @GYNCancer does have survivorship plans: https://t.co/xZbFuESrLE #gyncsm |
| Sevtap Savas, PhD @savaslab RT @btrfly12: T7: @SGO_org @GYNCancer does have survivorship plans: T7: @SGO_org @GYNCancer does have survivorship plans: https://t.co/xZbFuESrLE #gyncsm |
| Morgan Newman @MiSs_SuE22 TIL: Survivorship much like cancer diagnosis, treatment, etc. looks different for everyone - and there is NO shame in that! We have some really great communities blending together with resources too. #GYNCSM |
| Morgan Newman @MiSs_SuE22 RT @btrfly12: T7: @SGO_org @GYNCancer does have survivorship plans: T7: @SGO_org @GYNCancer does have survivorship plans: https://t.co/xZbFuESrLE #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm MT @roberta_codemo Replying to @gyncsm T7 After eight years, I recently graduated to every 6 month follow-ups. My gyn oncologist is very good at staying on top of things and I can contact him whenever I have a concern.Once you're his patient, you're his patient for life. |
| Christina Lizaso @btrfly12 RT @Michele_w_1_L: t7: t7: I feel that many hospitals lack adequate survivorship programs & survivors need to be better supported. I have had to find my own way & advocate for myself. We should be assigned "survivorship doulas"! #gyncsm |
| Christina Lizaso @btrfly12 RT @MiSs_SuE22: TIL: TIL: Survivorship much like cancer diagnosis, treatment, etc. looks different for everyone - and there is NO shame in that! We have some really great communities blending together with resources too. #GYNCSM |
| Martina Murphy, MD @DrMMurphy This is so true —> we have much work to do to better provide #survivorship support for patients & their families. #gyncsm |
| Christina Lizaso @btrfly12 RT @MiSs_SuE22: T2: T2: Absolutely 100%. In the work we do at @IamCervivor it is imperative we elevate the stories of patients and survivors because not everyone experiences the same cancer journey but someone may identify with a part of your story that can help them. #GYNCSM https://t.co/rq4oWtwJua |
| Dee Sparacio @womenofteal "survivorship doulas" I like that idea. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T7: @SGO_org @GYNCancer does have survivorship plans: T7: @SGO_org @GYNCancer does have survivorship plans: https://t.co/xZbFuESrLE #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone for the wonderful conversation. Really enjoyed this chat and really appreciate you sharing of yourselves and all who took time to listen and learn. #gyncsm |
| Dee Sparacio @womenofteal RT @MiSs_SuE22: TIL: TIL: Survivorship much like cancer diagnosis, treatment, etc. looks different for everyone - and there is NO shame in that! We have some really great communities blending together with resources too. #GYNCSM |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm MT @roberta_codemo Replying to @gyncsm T7 After eight years, I recently graduated to every 6 month follow-ups. My gyn oncologist is very good at staying on top of things and I can contact him whenever I have a concern.Once you're his patient, you're his patient for life. |
| Dee Sparacio @womenofteal RT @DrMMurphy: This is so true —> we have much work to do to better provide #survivorship support for patients & their families. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Our current plan is to hold six chats in 2023, meeting every other 2nd Wednesday at 8pmET. #gyncsm will not be meeting in February but Save the Date for our next chat Wednesday, March 8, 2023 at 8pmET when we’ll have an Open Mic Chat and celebrate our 100th Chat! |
| Dee Sparacio @womenofteal RT @womenofteal: "survivorship doulas" I like that idea. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks to everyone for the wonderful conversation. Really enjoyed this chat and really appreciate you sharing of yourselves and all who took time to listen and learn. #gyncsm |
| Sevtap Savas, PhD @savaslab RT @womenofteal: "survivorship doulas" I like that idea. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Feel free to keep answering tonight's topic questions if you are just joining or reading later :) Just include hashtag #gyncsm in your response tweets. |
| Dee Sparacio @womenofteal Fabulous discussion tonight. So many great resources too. Thanks everyone! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Our current plan is to hold six chats in 2023, meeting every other 2nd Wednesday at 8pmET. #gyncsm will not be meeting in February but Save the Date for our next chat Wednesday, March 8, 2023 at 8pmET when we’ll have an Open Mic Chat and celebrate our 100th Chat! |
| GYN Cancer | #GYNCSM @gyncsm We'll post the transcript from tonight's chat and then a blog post with a summary. You can look for that in the #gyncsm feed or pinned to our profile. Thanks @womenofteal for all your work on the blog. We also have our 2023 chat dates posted there on the side bar. |
| Dee Sparacio @womenofteal Next chat in March is a Big One --our 100th chat! Mark your calendar. You're all invited. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Feel free to keep answering tonight's topic questions if you are just joining or reading later :) Just include hashtag #gyncsm in your response tweets. |
| Dee Sparacio @womenofteal RT @gyncsm: We'll post the transcript from tonight's chat and then a blog post with a summary. You can look for that in the #gyncsm feed or pinned to our profile. Thanks @womenofteal for all your work on the blog. We also have our 2023 chat dates posted there on the side bar. |
| Martina Murphy, MD @DrMMurphy @gyncsm Thanks, as always, for a wonderful discussion. Grateful for such openness and willingness to share - your stories matter! 💕 #gyncsm |
| Dee Sparacio @womenofteal @IGCSociety is asking gyn cancer survivor-patients & caregivers to provide info re: survivorship care/support & insights on palliative care, clinical trials etc . Help ID gaps in care and advocate for change. https://t.co/4gdVk2gifS #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm chat schedule: https://t.co/1Ge7UePyu2 |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| Dee Sparacio @womenofteal We are grateful to all our participants and supporters . And a special thank you to @btrfly12 for keeping us on track tonight. #gyncsm |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm chat schedule: #gyncsm chat schedule: https://t.co/1Ge7UePyu2 |
| Martina Murphy, MD @DrMMurphy Tonight’s #gyncsm discussion on #survivorship was so impactful. For my colleagues who care for patients with gyn cancers - it’s so important to hear these stories and let them inform & expand your care. #oncmeded |
| Christina Lizaso @btrfly12 #gyncsm - join @acog #HighlightCervicalHealth chat Thursday, January 11th at 2pmET and join with @IamCervivor @StopHPVCancer and more all month long supporting #CervicalCancerAwarenessMonth |
| Sevtap Savas, PhD @savaslab RT @btrfly12: #gyncsm - join @acog #HighlightCervicalHealth chat Thursday, January 11th at 2pmET and join with @IamCervivor @StopHPVCancer and more all month long supporting #CervicalCancerAwarenessMonth |
| Dee Sparacio @womenofteal @clamiroult I've heard many women say the side effects are difficult for them to handle. I'm sorry. Maybe a conversation with your gyn onc/ nurse about them will lead to some relief. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm - join @acog #HighlightCervicalHealth chat Thursday, January 11th at 2pmET and join with @IamCervivor @StopHPVCancer and more all month long supporting #CervicalCancerAwarenessMonth |
| Dee Sparacio @womenofteal RT @DrMMurphy: Tonight’s #gyncsm discussion on #survivorship was so impactful. For my colleagues who care for patients with gyn cancers - it’s so important to hear these stories and let them inform & expand your care. #oncmeded |
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