#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our community co-moderators are @womenofteal @btrfly12 Our community healthcare moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
 | Dee Sparacio @womenofteal #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We start out with brief intro’s - Please take a moment to introduce yourself. :) #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| Dee Sparacio @womenofteal RT @gyncsm: Our community co-moderators are @womenofteal @btrfly12 Our community healthcare moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
 | Jillosopher, BSN, RN @jillosopher Hello #gyncsm Endometrial cancer survivor. Dx'ed Jan 2017. stage 3a endometrioid. |
| Dee Sparacio @womenofteal @jillosopher So happy you could join us Jill. #gyncsm |
| Jillosopher, BSN, RN @jillosopher I'm also a nurse, not practicing yet, but looking for work. :) #gyncsm |
 | Tobey @BRCAinfo Hi 👋 Happy healthy holiday season #gyncsm |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm |
| Dee Sparacio @womenofteal Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger & co-moderator #gyncsm |
 | Rick Boulay,MD @journeycancer RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| Dee Sparacio @womenofteal @BRCAinfo Hi there Tobey. Glad you are here tonight. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @womenofteal Thanks, Dee. Glad to be here. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to listen-only during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. |
| Rick Boulay,MD @journeycancer Good evening everyone. Rick Boulay GYN oncologist Bethlehem Pennsylvania #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Please continue intro's and welcomes - we'll start in w/ a couple "ground rules" and tips. #gyncsm |
| Tobey @BRCAinfo @womenofteal Thank you. Always nice to be here & show support. #gyncsm |
| Dee Sparacio @womenofteal @journeycancer Hi Rick. Hope you are doing well. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
 | Christine (Cissy) White @healWRITEnow Introducing myself. Writer. Advocate about how adversity in childhood impacts adult health. Getting chemo for ovarian cancer diagnosed a few mos. who. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @journeycancer Hi Rick. Good to see you. #gyncsm |
| Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
| Christina Lizaso @btrfly12 #gyncsm |
| Jillosopher, BSN, RN @jillosopher @BRCAinfo @womenofteal Hi Toby. #gyncsm |
| Dee Sparacio @womenofteal @healWRITEnow Welcome to our community and our chat. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
| Dee Sparacio @womenofteal @tanyaltee Glad to see you tonight! #gyncsm |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Messages to exchange email addresses/personal info #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Lovely group gathering for our last chat of 2019. We also welcome all those “listening in”. You can always DM or email us with questions/comments after the chat is over. https://t.co/oAfi7Me49e #gyncsm |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello friends. I'm Shereese here in Maryland #gyncsm https://t.co/XRbYpBFhbN |
| Dee Sparacio @womenofteal RT @gyncsm: Lovely group gathering for our last chat of 2019. We also welcome all those “listening in”. You can always DM or email us with questions/comments after the chat is over. https://t.co/oAfi7Me49e #gyncsm |
| Dee Sparacio @womenofteal @ShereesePubHlth Waving Hi . Thanks for joining Shereese. #gyncsm |
| Tobey @BRCAinfo @jillosopher @womenofteal Hiya back at you! Thanks for the shout out #gyncsm |
| Dee Sparacio @womenofteal Thank you to all who have tweeted during the past month with the #gyncsm hashtag and those who RT'd about this chat #gyncsm |
 | Lisa M Guzzardi, RN @LguzzardiM Happy Holidays #gyncsm from NY! #HereditaryCancer Patient advocate here & global journal club founder via FB. 🎄🎁 🕎 🕯 |
| Dee Sparacio @womenofteal @LguzzardiM Hi Lisa - Happy Holidays to you too. Thanks for joining us. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @jillosopher Hello #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight on #gyncsm our chat will be a little different as we share about the #gyncsm Survey Results and then have our 4th "open mic" discussion vs. having set questions around a central topic. |
| Dee Sparacio @womenofteal RT @gyncsm: Tonight on #gyncsm our chat will be a little different as we share about the #gyncsm Survey Results and then have our 4th "open mic" discussion vs. having set questions around a central topic. |
| Tobey @BRCAinfo RT @gyncsm: Tonight on #gyncsm our chat will be a little different as we share about the #gyncsm Survey Results and then have our 4th "open mic" discussion vs. having set questions around a central topic. |
| GYN Cancer | #GYNCSM @gyncsm You can find information about tonight’s chat on our #gyncsm blog page: https://t.co/SRGaQiRCKN |
| Dee Sparacio @womenofteal RT @gyncsm: You can find information about tonight’s chat on our #gyncsm blog page: https://t.co/SRGaQiRCKN |
| GYN Cancer | #GYNCSM @gyncsm We’re going to take the first few minutes of tonight’s chat to share 5 slides with some of the results of our 2019 #gyncsm Community Survey... |
| Dee Sparacio @womenofteal RT @gyncsm: We’re going to take the first few minutes of tonight’s chat to share 5 slides with some of the results of our 2019 #gyncsm Community Survey... |
| GYN Cancer | #GYNCSM @gyncsm Survey Results: Who responded to the 2019 #gyncsm community survey? [graphic] https://t.co/DLjYUKbbgk |
| Dee Sparacio @womenofteal Happy to share 5 graphics with results from our #gyncsm survey. Who responded? |
| Christina Lizaso @btrfly12 Between chats on the hashtag and on some chats themselves we have a lot of healthcare folks. It was nice to see this % of patients/survivors took the survey and are impacted by this community. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Between chats on the hashtag and on some chats themselves we have a lot of healthcare folks. It was nice to see this % of patients/survivors took the survey and are impacted by this community. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Survey Results: How did those who responded to the survey interact in the #gyncsm community? [graphic] https://t.co/EaytHMfJT1 |
| Dee Sparacio @womenofteal RT @gyncsm: Survey Results: Survey Results: How did those who responded to the survey interact in the #gyncsm community? [graphic] https://t.co/EaytHMfJT1 |
| Christina Lizaso @btrfly12 RT @gyncsm: Survey Results: Survey Results: How did those who responded to the survey interact in the #gyncsm community? [graphic] https://t.co/EaytHMfJT1 |
| Rick Boulay,MD @journeycancer RT @gyncsm: Survey Results: Survey Results: How did those who responded to the survey interact in the #gyncsm community? [graphic] https://t.co/EaytHMfJT1 |
 | Enlightening Results 💡 @GraceCordovano RT @btrfly12: Between chats on the hashtag and on some chats themselves we have a lot of healthcare folks. It was nice to see this % of patients/survivors took the survey and are impacted by this community. #gyncsm |
| Enlightening Results 💡 @GraceCordovano RT @gyncsm: Survey Results: Survey Results: How did those who responded to the survey interact in the #gyncsm community? [graphic] https://t.co/EaytHMfJT1 |
| Enlightening Results 💡 @GraceCordovano RT @gyncsm: Tonight on #gyncsm our chat will be a little different as we share about the #gyncsm Survey Results and then have our 4th "open mic" discussion vs. having set questions around a central topic. |
| Jillosopher, BSN, RN @jillosopher @LoriAdelson2 @gyncsm Hi Lori! Welcome. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Survey Results: What was learned and used from #gyncsm by those who responded to the survey? [graphic] Those on tonight - What would you add to the list? https://t.co/nobnE2hs1R |
| Dee Sparacio @womenofteal @gyncsm Interesting that there are those who follow the chat but don't tweet. Even if you don't participate let us know you are here by tweeting #gyncsm |
| Tobey @BRCAinfo @LoriAdelson2 @gyncsm Welcome to #gyncsm |
| Dee Sparacio @womenofteal @LoriAdelson2 @gyncsm Hi Lori, Thanks for joining us. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Survey Results: Survey Results: What was learned and used from #gyncsm by those who responded to the survey? [graphic] Those on tonight - What would you add to the list? https://t.co/nobnE2hs1R |
| Rick Boulay,MD @journeycancer RT @gyncsm: Survey Results: Survey Results: What was learned and used from #gyncsm by those who responded to the survey? [graphic] Those on tonight - What would you add to the list? https://t.co/nobnE2hs1R |
| GYN Cancer | #GYNCSM @gyncsm Survey Results: What were the important topics covered by #gyncsm in 2019? [graphic] https://t.co/oUL4ivOrJm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: Survey Results: Survey Results: What was learned and used from #gyncsm by those who responded to the survey? [graphic] Those on tonight - What would you add to the list? https://t.co/nobnE2hs1R |
| Rick Boulay,MD @journeycancer RT @gyncsm: Survey Results: Survey Results: What were the important topics covered by #gyncsm in 2019? [graphic] https://t.co/oUL4ivOrJm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @btrfly12: Between chats on the hashtag and on some chats themselves we have a lot of healthcare folks. It was nice to see this % of patients/survivors took the survey and are impacted by this community. #gyncsm |
 | Sarah Temkin @temkins RT @gyncsm: Survey Results: Survey Results: What was learned and used from #gyncsm by those who responded to the survey? [graphic] Those on tonight - What would you add to the list? https://t.co/nobnE2hs1R |
| Dee Sparacio @womenofteal @gyncsm I've shared a few #gyncsm blog posts to a closed Facebook group |
| Christina Lizaso @btrfly12 @gyncsm You can find the summary blog posts about all our topics on the #gyncsm blog. The summary contains selected tweets plus a link to the full transcript and all the links shared during the chat are at the bottom. https://t.co/Yjl2PARkex |
| Dee Sparacio @womenofteal RT @gyncsm: Survey Results: Survey Results: What were the important topics covered by #gyncsm in 2019? [graphic] https://t.co/oUL4ivOrJm |
| Dee Sparacio @womenofteal RT @btrfly12: @gyncsm You can find the summary blog posts about all our topics on the #gyncsm blog. The summary contains selected tweets plus a link to the full transcript and all the links shared during the chat are at the bottom. https://t.co/Yjl2PARkex |
| Jillosopher, BSN, RN @jillosopher RT @btrfly12: @gyncsm You can find the summary blog posts about all our topics on the #gyncsm blog. The summary contains selected tweets plus a link to the full transcript and all the links shared during the chat are at the bottom. https://t.co/Yjl2PARkex |
| Christina Lizaso @btrfly12 #gyncsm : |
 | Rachel Pozzar, PhD, RN @RPozzar RT @gyncsm: Survey Results: Survey Results: What were the important topics covered by #gyncsm in 2019? [graphic] https://t.co/oUL4ivOrJm |
| Tobey @BRCAinfo RT @btrfly12: @gyncsm You can find the summary blog posts about all our topics on the #gyncsm blog. The summary contains selected tweets plus a link to the full transcript and all the links shared during the chat are at the bottom. https://t.co/Yjl2PARkex |
| GYN Cancer | #GYNCSM @gyncsm Last one: Survey Results: How can #gyncsm do better in the future? [graphic] https://t.co/jaw7XY1eDC |
| Lisa M Guzzardi, RN @LguzzardiM @gyncsm Interesting side note that clinical trials are missing from the list. Unimportant? Unnoticed ? Unpopular? #gyncsm |
| Dee Sparacio @womenofteal @healWRITEnow @gyncsm We have genetic counselors and other health care providers join in too. If you add #gyncsm to your tweet everyone following the hashtag and this chat can see your responses. |
| Dee Sparacio @womenofteal RT @gyncsm: Last one: Survey Results: How can #gyncsm do better in the future? [graphic] https://t.co/jaw7XY1eDC |
| Christina Lizaso @btrfly12 Thanks so much to everyone who filled out the survey. We are using the topic feedback as we finalize our 2020 chats. FYI - We'll be taking off March/June/October as we did in 2019. #gyncsm |
| Sarah Temkin @temkins RT @gyncsm: Last one: Survey Results: How can #gyncsm do better in the future? [graphic] https://t.co/jaw7XY1eDC |
| Sarah Temkin @temkins RT @gyncsm: Survey Results: Survey Results: How did those who responded to the survey interact in the #gyncsm community? [graphic] https://t.co/EaytHMfJT1 |
| Sarah Temkin @temkins RT @btrfly12: Between chats on the hashtag and on some chats themselves we have a lot of healthcare folks. It was nice to see this % of patients/survivors took the survey and are impacted by this community. #gyncsm |
| Christina Lizaso @btrfly12 @LguzzardiM @gyncsm We'll have to check the full results about that specifically. I know I could talk about #clinicaltrials all day. We have done several chats on different aspects but always seems there is more to talk about. #gyncsm |
| Rachel Pozzar, PhD, RN @RPozzar @womenofteal @gyncsm Researcher and NP here, following tonight’s chat. Thanks, @womenofteal and @btrfly12 for all you do. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm For the rest of the time tonight we offer you, our participants, the "mic". You are free to ask ?ʼs, make comments, share advice and to share your story. #gyncsm |
| Tobey @BRCAinfo I’m really sorry I will have to catch up with your transcript tomorrow - I just got a call from a friend in need. Happy & healthy holidays everyone #gyncsm |
| Dee Sparacio @womenofteal @LguzzardiM @gyncsm 88% rated side effects as most important , 66% for clinical trials so it would fall at number 9 or 10 in our list. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Thanks so much to everyone who filled out the survey. We are using the topic feedback as we finalize our 2020 chats. FYI - We'll be taking off March/June/October as we did in 2019. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @RPozzar @womenofteal @gyncsm @btrfly12 Hi Rachel! I'm a new (but old) RN. Career change thing. #gyncsm |
 | Tanya Temkin @tanyaltee One big issue I’ve heard from many OC survivors is how to get into a trial— Phase 3 especially. Apparently very competitive #gyncsm |
| Dee Sparacio @womenofteal @RPozzar @gyncsm @btrfly12 Hi Rachel , Thanks for joining our chat tonight. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: For the rest of the time tonight we offer you, our participants, the "mic". You are free to ask ?ʼs, make comments, share advice and to share your story. #gyncsm |
| Christina Lizaso @btrfly12 @BRCAinfo So glad to tweet along with you for a bit. You are such a wonderful support for others. Happy Holidays. #gyncsm |
| Christina Lizaso @btrfly12 RT @tanyaltee: One big issue I’ve heard from many OC survivors is how to get into a trial— Phase 3 especially. Apparently very competitive #gyncsm |
| Jillosopher, BSN, RN @jillosopher @BRCAinfo Take care, Tobey, and happy holidays to you, too. #gyncsm |
| Sarah Temkin @temkins Sorry I'm late! Happy holidays and amazing survey #gyncsm |
| Rick Boulay,MD @journeycancer You can find all the clinical trials open in the country on https://t.co/Qq5P2ZzYcW. You can search under ovarian cancer. Or often times your local health networks will have them on their website. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @temkins Hi Sarah! #gyncsm Happy holidays to you. |
| Dee Sparacio @womenofteal @temkins Hi Sarah, Good to see you. #gyncsm |
| Dee Sparacio @womenofteal RT @journeycancer: You can find all the clinical trials open in the country on https://t.co/Qq5P2ZzYcW. You can search under ovarian cancer. Or often times your local health networks will have them on their website. #gyncsm |
| Christina Lizaso @btrfly12 Clinical trials are tough as each one is so different and finding even the right contact person at each site is a challenge. @power4patients and others have good resource collections but still daunting https://t.co/VAzeMMGbb5 #gyncsm |
| Tanya Temkin @tanyaltee @temkins Hi Sarah, from the other Temkin! #gyncsm |
| Christina Lizaso @btrfly12 RT @journeycancer: You can find all the clinical trials open in the country on https://t.co/Qq5P2ZzYcW. You can search under ovarian cancer. Or often times your local health networks will have them on their website. #gyncsm |
 | Amanda Crowell Itliong @MIShouldTalk Hey everybody! I’ve been thinking about this article and study today. #gyncsm |
| Dee Sparacio @womenofteal You would think that being moderator for 6 yrs I would remember to use the #gyncsm hashtag. |
| Dee Sparacio @womenofteal RT @btrfly12: Clinical trials are tough as each one is so different and finding even the right contact person at each site is a challenge. @power4patients and others have good resource collections but still daunting https://t.co/VAzeMMGbb5 #gyncsm |
| Christine (Cissy) White @healWRITEnow @tanyaltee #gyncsm Is it based on location, I wonder, or other factors about age, stage, and treatment? I wonder if that will change when a PARBs more readily available earlier no matter what BRCA status? |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba It still seems that minority pops are overlooked in clinical trials, yet the data from these groups is crucial. Minority participation still stand at around 4%, well below the national averages. Why is this? #gyncsm |
| Christina Lizaso @btrfly12 A huge thank you to our healthcare professionals. You give so much of yourselves to your patients and we appreciate your time on #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: It still seems that minority pops are overlooked in clinical trials, yet the data from these groups is crucial. Minority participation still stand at around 4%, well below the national averages. Why is this? #gyncsm |
| Dee Sparacio @womenofteal @MIShouldTalk Hi Amanda , I have thought about those results too. I had surgery on recurrence. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: You would think that being moderator for 6 yrs I would remember to use the #gyncsm hashtag. |
| Dee Sparacio @womenofteal RT @ShereesePubHlth: It still seems that minority pops are overlooked in clinical trials, yet the data from these groups is crucial. Minority participation still stand at around 4%, well below the national averages. Why is this? #gyncsm |
| Jillosopher, BSN, RN @jillosopher @MIShouldTalk That's disheartening. I'll have to read it later. I wonder if that conclusion applies to all cell types and grades of ovca. #gyncsm |
| Tanya Temkin @tanyaltee Women get frustrated by exclusion criteria too. Very disheartening for those who feel they’ve run out of options. #gyncsm |
| Christina Lizaso @btrfly12 @MIShouldTalk Here's the study link directly... hmmm Surgery for Recurrent Ovarian Cancer Does Not Improve Survival https://t.co/dERUkEI0Kp #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @btrfly12: @MIShouldTalk Here's the study link directly... hmmm Surgery for Recurrent Ovarian Cancer Does Not Improve Survival https://t.co/dERUkEI0Kp #gyncsm |
| Dee Sparacio @womenofteal @ShereesePubHlth That's a great question. My cancer center just opened a Health Disparities center to try to understand and increase numbers of minorities who participate. As for why - I'll start with Language barriers, travel, child care, #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: @ShereesePubHlth That's a great question. My cancer center just opened a Health Disparities center to try to understand and increase numbers of minorities who participate. As for why - I'll start with Language barriers, travel, child care, #gyncsm |
| Dee Sparacio @womenofteal I agree 100% . |
| Christina Lizaso @btrfly12 @ShereesePubHlth Are there any national organizations with specific initiatives in this area - minority participation in #clinicaltrials ? #gyncsm |
| Sarah Temkin @temkins Black and Hispanic women are definitely under-accrued to clinical trials in ovarian cancer but this disparity is less pronounced in endometrial and cervical cancer #gyncsm https://t.co/vljBh6hCWv |
| Christina Lizaso @btrfly12 RT @tanyaltee: Women get frustrated by exclusion criteria too. Very disheartening for those who feel they’ve run out of options. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: @ShereesePubHlth That's a great question. My cancer center just opened a Health Disparities center to try to understand and increase numbers of minorities who participate. As for why - I'll start with Language barriers, travel, child care, #gyncsm |
| Christina Lizaso @btrfly12 RT @temkins: Black and Hispanic women are definitely under-accrued to clinical trials in ovarian cancer but this disparity is less pronounced in endometrial and cervical cancer #gyncsm https://t.co/vljBh6hCWv |
| Rick Boulay,MD @journeycancer That question has been explored quite a bit. There are a number of findings. The first is language barriers make it difficult to explain studies to nonEnglish speaking people. The second are cultural barriers formed by mistrust of The medical establishment. #gyncsm |
| Sarah Temkin @temkins @btrfly12 @ShereesePubHlth @ECANAwomen and @KemiDoll are all over this in endometrial cancer. #gyncsm. |
| Dee Sparacio @womenofteal @jillosopher @MIShouldTalk I believe it was HGSOC. We already knew that more than 1-3 spots should not have surgery yet some patients had surgery in the study and not all the cancer was removed. That could explain the results. #gyncsm |
| Dee Sparacio @womenofteal RT @tanyaltee: Women get frustrated by exclusion criteria too. Very disheartening for those who feel they’ve run out of options. #gyncsm |
| Dee Sparacio @womenofteal RT @temkins: Black and Hispanic women are definitely under-accrued to clinical trials in ovarian cancer but this disparity is less pronounced in endometrial and cervical cancer #gyncsm https://t.co/vljBh6hCWv |
| Dee Sparacio @womenofteal RT @btrfly12: @MIShouldTalk Here's the study link directly... hmmm Surgery for Recurrent Ovarian Cancer Does Not Improve Survival https://t.co/dERUkEI0Kp #gyncsm |
| Dee Sparacio @womenofteal RT @journeycancer: That question has been explored quite a bit. There are a number of findings. The first is language barriers make it difficult to explain studies to nonEnglish speaking people. The second are cultural barriers formed by mistrust of The medical establishment. #gyncsm |
| Lisa M Guzzardi, RN @LguzzardiM Helping Cancer Patients Navigate #ClinicalTrials #gyncsm #ovariancancer Via @biospace https://t.co/EoqjWTXZYA |
| Sarah Temkin @temkins RT @LguzzardiM: Helping Cancer Patients Navigate #ClinicalTrials #gyncsm #ovariancancer Via @biospace https://t.co/EoqjWTXZYA |
| Christine (Cissy) White @healWRITEnow @journeycancer #gyncsm Wow. I wonder about representation among medical offices and teams & if that is a factor re: language, recruitment, trust, safety? |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Those are some real issues, especially the issue of trust. But that places a lot of the ownership on the populations, not the industry. I'd include the fact that clinical trial orgs often use the old pipelines for trials & are not inclusive and they need to be. #gyncsm |
| Jillosopher, BSN, RN @jillosopher #gyncsm |
| Christina Lizaso @btrfly12 Research and ovarian cancer advocate @Stigetta was involved in this paper that just came out: A Priorities Assessment Tool to Support Shared Decision Making, Maximize Appointment Time, and Increase Patient Satisfaction in Women With Ovarian Cancer https://t.co/8WJzSdXcPn #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @btrfly12: Research and ovarian cancer advocate @Stigetta was involved in this paper that just came out: A Priorities Assessment Tool to Support Shared Decision Making, Maximize Appointment Time, and Increase Patient Satisfaction in Women With Ovarian Cancer https://t.co/8WJzSdXcPn #gyncsm |
| Rick Boulay,MD @journeycancer That is absolutely true. We hired bilingual clinical trials nurses and immediately begin accruing non-English speakers. You have to know your community and support it. #GYNCSM |
| Dee Sparacio @womenofteal @temkins This article talks about the rising numbers of black women with endometrial cancer / uterine sarcoma a #gyncsm https://t.co/55lqvidkE2 |
| Christina Lizaso @btrfly12 RT @healWRITEnow: @journeycancer #gyncsm Wow. I wonder about representation among medical offices and teams & if that is a factor re: @journeycancer #gyncsm Wow. I wonder about representation among medical offices and teams & if that is a factor re: language, recruitment, trust, safety? |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: @temkins This article talks about the rising numbers of black women with endometrial cancer / uterine sarcoma a #gyncsm https://t.co/55lqvidkE2 |
| Dee Sparacio @womenofteal RT @LguzzardiM: Helping Cancer Patients Navigate #ClinicalTrials #gyncsm #ovariancancer Via @biospace https://t.co/EoqjWTXZYA |
| Christina Lizaso @btrfly12 RT @journeycancer: That is absolutely true. We hired bilingual clinical trials nurses and immediately begin accruing non-English speakers. You have to know your community and support it. #GYNCSM |
| Dee Sparacio @womenofteal RT @ShereesePubHlth: Those are some real issues, especially the issue of trust. But that places a lot of the ownership on the populations, not the industry. I'd include the fact that clinical trial orgs often use the old pipelines for trials & are not inclusive and they need to be. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Enrollment of Racial Minorities in Clinical Trials: Old Problem Assumes New Urgency in the Age of Immunotherapy | American Society of Clinical Oncology Educational Book https://t.co/V3mJeux84d #gyncsm |
| Dee Sparacio @womenofteal RT @jillosopher: #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Research and ovarian cancer advocate @Stigetta was involved in this paper that just came out: A Priorities Assessment Tool to Support Shared Decision Making, Maximize Appointment Time, and Increase Patient Satisfaction in Women With Ovarian Cancer https://t.co/8WJzSdXcPn #gyncsm |
| Sarah Temkin @temkins RT @womenofteal: @temkins This article talks about the rising numbers of black women with endometrial cancer / uterine sarcoma a #gyncsm https://t.co/55lqvidkE2 |
| Sarah Temkin @temkins RT @ShereesePubHlth: Enrollment of Racial Minorities in Clinical Trials: Enrollment of Racial Minorities in Clinical Trials: Old Problem Assumes New Urgency in the Age of Immunotherapy | American Society of Clinical Oncology Educational Book https://t.co/V3mJeux84d #gyncsm |
| Christina Lizaso @btrfly12 @LguzzardiM @biospace Clinical trial navigation is a big need. #gyncsm |
| Dee Sparacio @womenofteal @btrfly12 @Stigetta This is awesome work and hopefully the survey can have widespread implementation. #gyncsm |
| Dee Sparacio @womenofteal RT @journeycancer: That is absolutely true. We hired bilingual clinical trials nurses and immediately begin accruing non-English speakers. You have to know your community and support it. #GYNCSM |
| Rick Boulay,MD @journeycancer @ShereesePubHlth I believe the trust issue is expressly the result of unethical clinical trials performed at the expense of subjects in minority communities, specifically African-American. Those of us who currently perform clinical trials need to earn that trust back. #GYNCSM |
| Dee Sparacio @womenofteal RT @ShereesePubHlth: Enrollment of Racial Minorities in Clinical Trials: Enrollment of Racial Minorities in Clinical Trials: Old Problem Assumes New Urgency in the Age of Immunotherapy | American Society of Clinical Oncology Educational Book https://t.co/V3mJeux84d #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @journeycancer: @ShereesePubHlth I believe the trust issue is expressly the result of unethical clinical trials performed at the expense of subjects in minority communities, specifically African-American. Those of us who currently perform clinical trials need to earn that trust back. #GYNCSM |
| Dee Sparacio @womenofteal RT @journeycancer: @ShereesePubHlth I believe the trust issue is expressly the result of unethical clinical trials performed at the expense of subjects in minority communities, specifically African-American. Those of us who currently perform clinical trials need to earn that trust back. #GYNCSM |
| Dee Sparacio @womenofteal Did you see this Nature article: Both fallopian tube & ovarian surface epithelium are cells-of-origin for HGSOC https://t.co/4rhbkfzNNl #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: Did you see this Nature article: Did you see this Nature article: Both fallopian tube & ovarian surface epithelium are cells-of-origin for HGSOC https://t.co/4rhbkfzNNl #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @btrfly12: #gyncsm |
| Jillosopher, BSN, RN @jillosopher @ShereesePubHlth Can't wait to read that! #gyncsm |
| Dee Sparacio @womenofteal @btrfly12 Great minds think alike . LOL #gyncsm |
| Dee Sparacio @womenofteal #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thanks to all who have joined along for tonight's #gyncsm chat. We like to take time at the end to share any closing thoughts and use TIL: at the start of the tweet to stand for Today I Learned. You can also share any initiatives/blog posts/announcements. |
| Dee Sparacio @womenofteal #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks to all who have joined along for tonight's #gyncsm chat. We like to take time at the end to share any closing thoughts and use TIL: at the start of the tweet to stand for Today I Learned. You can also share any initiatives/blog posts/announcements. |
| Christina Lizaso @btrfly12 Dee has some great thoughts on the getting through the holidays while in treatment. Check out her post on @Globeathon https://t.co/bqOfUZMnLb #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: #gyncsm |
| Rick Boulay,MD @journeycancer RT @btrfly12: Dee has some great thoughts on the getting through the holidays while in treatment. Check out her post on @Globeathon https://t.co/bqOfUZMnLb #gyncsm |
| Tanya Temkin @tanyaltee @womenofteal So many articles linked in this chat for me to review and introduce to the FB OVCA support groups I take part in... #gyncsm |
| Jillosopher, BSN, RN @jillosopher RT @btrfly12: Dee has some great thoughts on the getting through the holidays while in treatment. Check out her post on @Globeathon https://t.co/bqOfUZMnLb #gyncsm |
| Jillosopher, BSN, RN @jillosopher RT @LguzzardiM: Helping Cancer Patients Navigate #ClinicalTrials #gyncsm #ovariancancer Via @biospace https://t.co/EoqjWTXZYA |
| Dee Sparacio @womenofteal @tanyaltee See you in those groups Tanya. I'll post the links to the studies in our blog post too in case you need to refer back to them. #gyncsm |
| Christine (Cissy) White @healWRITEnow @tanyaltee @womenofteal #gyncsm what’s the FB group? |
| Christina Lizaso @btrfly12 TIL: So thankful to spend time each month on #gyncsm. Thankful for all each one of you does as an advocate for yourself and others impacted by cancer. Enjoyed seeing both new and familiar faces for our "less formal" chat to close out the year. Best wishes to all in 2020. |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone for the wonderful conversation. Please join us in January - one week later than usual - on Wednesday Jan 15th for our chat about “Goals of Care throughout the Cancer Experience” #gyncsm |
| Dee Sparacio @womenofteal I am so grateful to all the survey participants for letting us know what we are doing right and what we can improve on. TIL we can support one another by sharing information . #gyncsm |
| Rick Boulay,MD @journeycancer TIL Our advocates continue to push the clinical medical practitioners and researchers to be better in every way. Thank you all for showing us the way. #gyncsm |
| Jillosopher, BSN, RN @jillosopher Not #gyncsm related, but wanted to share that I lost my best friend to breast cancer one month ago. I feel grief, fear about myself, survivor guilt, and did I mention fear about myself as I come up on 3 yrs post dx? R.I.P. Pilar. |
| Christina Lizaso @btrfly12 RT @journeycancer: TIL Our advocates continue to push the clinical medical practitioners and researchers to be better in every way. Thank you all for showing us the way. #gyncsm |
| Dee Sparacio @womenofteal @healWRITEnow @tanyaltee There are a number of closed Facebook groups that OC can join. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| Jillosopher, BSN, RN @jillosopher RT @gyncsm: Thanks to everyone for the wonderful conversation. Please join us in January - one week later than usual - on Wednesday Jan 15th for our chat about “Goals of Care throughout the Cancer Experience” #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Have a safe and peaceful season. #gyncsm https://t.co/vT9QHMdULW |
| Rick Boulay,MD @journeycancer Here’s to an amazing 2020! Your next year of survivorship! Have a wonderful holiday everyone. #gyncsm |
| Dee Sparacio @womenofteal @jillosopher So sorry for your loss. I know I lost a friend , fellow advocate and non-profit OC foundation founder last week. Difficult times for sure. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| Dee Sparacio @womenofteal Wishing everyone a very Happy Holidays #gyncsm https://t.co/xCFs7bOIiu |
| Christina Lizaso @btrfly12 Thankful for all the good, hard work @womenofteal does on our blog. I think the chat summaries are such a great resource. Also for keeping things on track and laying out great topics. Here's to another year. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: Wishing everyone a very Happy Holidays #gyncsm https://t.co/xCFs7bOIiu |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Christine (Cissy) White @healWRITEnow RT @btrfly12: TIL: TIL: So thankful to spend time each month on #gyncsm. Thankful for all each one of you does as an advocate for yourself and others impacted by cancer. Enjoyed seeing both new and familiar faces for our "less formal" chat to close out the year. Best wishes to all in 2020. |
| Tanya Temkin @tanyaltee @healWRITEnow @womenofteal There are several... Sisterhood of Ovarian Cancer Survivors, Ovarian Cancer Support Group among other closed groups. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @womenofteal Oh no, so sorry, Dee. #gyncsm |
| Dee Sparacio @womenofteal @btrfly12 Thanks! I could never do this without you. Thanks for being the best partner I could ever ask for. #gyncsm |
| Sarah Temkin @temkins RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Christina Lizaso @btrfly12 @jillosopher Thanks for sharing and so sorry for your loss. Cancer takes so much. Some days are especially hard. #gyncsm |
| Sarah Temkin @temkins RT @journeycancer: TIL Our advocates continue to push the clinical medical practitioners and researchers to be better in every way. Thank you all for showing us the way. #gyncsm |
| Dee Sparacio @womenofteal @journeycancer Same to you Rick. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @btrfly12 @womenofteal Thanks, Christina! You and Dee do such a great job. I appreciate you both so much. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @ShereesePubHlth Happy holidays, Shereese! #gyncsm |
| Dee Sparacio @womenofteal Thanks @jillosopher @tanyaltee @ShereesePubHlth @healWRITEnow for joining us tonight. See you in the new year. #gyncsm |
| Tanya Temkin @tanyaltee Talk & tweet with you all in the New Year. Have wonderful holidays! #gyncsm |
| Rick Boulay,MD @journeycancer Thank you Dee and Christina for all you do for The GYN oncology community. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @womenofteal @tanyaltee @ShereesePubHlth @healWRITEnow Happy holidays to all. #gyncsm |
| Dee Sparacio @womenofteal @ShereesePubHlth You too. #gyncsm |
| Jillosopher, BSN, RN @jillosopher Goodnight #gyncsm community. Wishing all a happy and healthy holiday season. |
 | Anthony M Tucker @AnthonyCFO RT @ShereesePubHlth: Enrollment of Racial Minorities in Clinical Trials: Enrollment of Racial Minorities in Clinical Trials: Old Problem Assumes New Urgency in the Age of Immunotherapy | American Society of Clinical Oncology Educational Book https://t.co/V3mJeux84d #gyncsm |
| Anthony M Tucker @AnthonyCFO RT @ShereesePubHlth: It still seems that minority pops are overlooked in clinical trials, yet the data from these groups is crucial. Minority participation still stand at around 4%, well below the national averages. Why is this? #gyncsm |
| Dee Sparacio @womenofteal @healWRITEnow Missed this in my flurry of notifications. Yes, you may use #gyncsm for any gyn cancer - endometrial, uterine sarcoma , cervical, vulvar, vaginal, fallopian tube as well as primary peritoneal and GTD. |
| Jillosopher, BSN, RN @jillosopher RT @womenofteal: @healWRITEnow Missed this in my flurry of notifications. Yes, you may use #gyncsm for any gyn cancer - endometrial, uterine sarcoma , cervical, vulvar, vaginal, fallopian tube as well as primary peritoneal and GTD. |
#GynCSM content from Twitter.