#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | NCI Cancer Stats @NCICancerStats Uterine #cancer is the 9th most common cancer in the United States. Find more stats about this cancer here: https://t.co/UwrIAqWuTn #GynCSM https://t.co/H1n4IiAaw7 |
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: : Ovarian Cancer and Gyn Cancers survivors: Volunteers Needed: : Ovarian Cancer and Gyn Cancers survivors: Volunteers Needed: Self-reporting Symptoms During Cancer Treatment Study at @txwomans @CarrascoSharyn (in person / Facetime / Skype) https://t.co/5EiAeU2YS5 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 #gyncsm |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
 | SandyHiltonPT @SandyHiltonPT RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | IamCervivor @IamCervivor RT @gyncsm: You can read over tonight’s #gyncsm topics for our “Pelvic Health” chat on our blog - https://t.co/gOR2OgGwUw |
| GYN Cancer | #GYNCSM @gyncsm We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm |
| Dee Sparacio @womenofteal Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger & co-moderator #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. |
| GYN Cancer | #GYNCSM @gyncsm Please continue intro's & welcomes - we'll start in w/ the "ground rules" :) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy #gyncsm |
| IamCervivor @IamCervivor #Cervivor is a global non-profit dedicated to #CervicalCancer prevention & awareness. We believe our Cervivor stories can change the narrative on #HPV & cervical cancer. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| Dee Sparacio @womenofteal @IamCervivor So glad you are able to join us tonight! #gyncsm |
 | Tamika Felder @tamikafelder RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy #gyncsm |
| Dee Sparacio @womenofteal Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy #gyncsm |
| Dee Sparacio @womenofteal Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal information #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: #Cervivor is a global non-profit dedicated to #CervicalCancer prevention & awareness. We believe our Cervivor stories can change the narrative on #HPV & cervical cancer. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience. #gyncsm |
| SandyHiltonPT @SandyHiltonPT There is so@much we can help with! #GynCSM |
 | Tracy Sher, DPT @PelvicGuru1 @gyncsm Hi! I'm a pelvic physical therapist in Orlando, Florida and see patients with complex pelvic pain and pelvic floor dysfunction and so much more. #gyncsm #pelvicphysicaltherapy #pelvicPT |
| Dee Sparacio @womenofteal @SandyHiltonPT Welcome to our community. Happy you are able to join us. #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience. #gyncsm |
| Dee Sparacio @womenofteal @PelvicGuru1 @gyncsm Glad to have you here with us tonight! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thanks to our health professionals who are joining. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. https://t.co/oAfi7Me49e #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: Thanks to our health professionals who are joining. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. https://t.co/oAfi7Me49e #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight we will discuss Pelvic Health After A Gynecologic Cancer Diagnosis #gyncsm |
| Dee Sparacio @womenofteal #gyncsm community is here to support and inform survivors, medical workers & loved ones w/ gyn cancer interest |
| IamCervivor @IamCervivor RT @gyncsm: Tonight we will discuss Pelvic Health After A Gynecologic Cancer Diagnosis #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm |
| Dee Sparacio @womenofteal Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat |
| Dee Sparacio @womenofteal RT @gyncsm: As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm |
| SandyHiltonPT @SandyHiltonPT RT @gyncsm: Thanks to our health professionals who are joining. We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. https://t.co/oAfi7Me49e #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm You can find a listing of all the #gyncsm Pelvic Health questions that will be coming up here: https://t.co/gOR2OgGwUw |
| Christina Lizaso @btrfly12 RT @gyncsm: Tonight we will discuss Pelvic Health After A Gynecologic Cancer Diagnosis #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: You can find a listing of all the #gyncsm Pelvic Health questions that will be coming up here: You can find a listing of all the #gyncsm Pelvic Health questions that will be coming up here: https://t.co/gOR2OgGwUw |
| Dee Sparacio @womenofteal RT @gyncsm: You can find a listing of all the #gyncsm Pelvic Health questions that will be coming up here: You can find a listing of all the #gyncsm Pelvic Health questions that will be coming up here: https://t.co/gOR2OgGwUw |
| Christina Lizaso @btrfly12 RT @gyncsm: You can find a listing of all the #gyncsm Pelvic Health questions that will be coming up here: You can find a listing of all the #gyncsm Pelvic Health questions that will be coming up here: https://t.co/gOR2OgGwUw |
| GYN Cancer | #GYNCSM @gyncsm Here's the first topic... T1: What is pelvic health and why is it important? #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm be sure to include #gyncsm when you add your thoughts on each Topic (T1,T2,etc.) :) |
| Christina Lizaso @btrfly12 RT @gyncsm: Here's the first topic... T1: What is pelvic health and why is it important? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Here's the first topic... T1: What is pelvic health and why is it important? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: be sure to include #gyncsm when you add your thoughts on each Topic (T1,T2,etc.) :) |
| IamCervivor @IamCervivor T1: Pelvic health is important to overall well-being. It actually encompasses much more than we initially think, including bowel/urinary tract function, sexual health, digestion, even neurology! #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: T1: T1: Pelvic health is important to overall well-being. It actually encompasses much more than we initially think, including bowel/urinary tract function, sexual health, digestion, even neurology! #gyncsm |
| Christina Lizaso @btrfly12 T1: Pelvic health involves all the organs located in the female pelvis-the bladder, parts of the bowel or intestine, all reproductive organs (uterus, ovaries, and vagina), and the muscles, ligaments, and other tissues that hold everything together. #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: T1: T1: Pelvic health is important to overall well-being. It actually encompasses much more than we initially think, including bowel/urinary tract function, sexual health, digestion, even neurology! #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T1: T1: Pelvic health involves all the organs located in the female pelvis-the bladder, parts of the bowel or intestine, all reproductive organs (uterus, ovaries, and vagina), and the muscles, ligaments, and other tissues that hold everything together. #gyncsm |
| IamCervivor @IamCervivor RT @btrfly12: T1: T1: Pelvic health involves all the organs located in the female pelvis-the bladder, parts of the bowel or intestine, all reproductive organs (uterus, ovaries, and vagina), and the muscles, ligaments, and other tissues that hold everything together. #gyncsm |
 | DENTAL NEWS FOR PATIENTS @DrNimaDayani RT @IamCervivor: #Cervivor is a global non-profit dedicated to #CervicalCancer prevention & awareness. We believe our Cervivor stories can change the narrative on #HPV & cervical cancer. #gyncsm |
| DENTAL NEWS FOR PATIENTS @DrNimaDayani RT @IamCervivor: T1: Pelvic health is important to overall well-being. It actually encompasses much more than we initially think, including bowel/urinary tract function, sexual health, digestion, even neurology! #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm: |
| Dee Sparacio @womenofteal @bcmhouston website states : "Pelvic Health is best possible functioning & management of the bladder, bowel, and reproductive organs. It is not merely the absence of disease or weakness in these organs." #gyncsm |
| SandyHiltonPT @SandyHiltonPT Oops. #GynCSM It’s been a long week |
| Dee Sparacio @womenofteal RT @SandyHiltonPT: Oops. #GynCSM It’s been a long week |
| Tracy Sher, DPT @PelvicGuru1 @gyncsm T1: Great question because most people don't know what #pelvichealth is. It involves the entire area of the bony pelvis, lower abdomen, genitals, reproductive organs, muscles, bowel/bladder/sexual function, nerves...and more (for male and female parts). #gyncsm |
| Christina Lizaso @btrfly12 T1: Pelvic health can have a big impact on quality of life after treatment for a gyn cancer - Pelvic floor disorders can affect bladder function, bowel function, pain and sexual function. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: @bcmhouston website states : @bcmhouston website states : "Pelvic Health is best possible functioning & management of the bladder, bowel, and reproductive organs. It is not merely the absence of disease or weakness in these organs." #gyncsm |
| Christina Lizaso @btrfly12 RT @PelvicGuru1: @gyncsm T1: @gyncsm T1: Great question because most people don't know what #pelvichealth is. It involves the entire area of the bony pelvis, lower abdomen, genitals, reproductive organs, muscles, bowel/bladder/sexual function, nerves...and more (for male and female parts). #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: @bcmhouston website states : @bcmhouston website states : "Pelvic Health is best possible functioning & management of the bladder, bowel, and reproductive organs. It is not merely the absence of disease or weakness in these organs." #gyncsm |
| Dee Sparacio @womenofteal RT @PelvicGuru1: @gyncsm T1: @gyncsm T1: Great question because most people don't know what #pelvichealth is. It involves the entire area of the bony pelvis, lower abdomen, genitals, reproductive organs, muscles, bowel/bladder/sexual function, nerves...and more (for male and female parts). #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2: How do treatments for gynecologic cancers impact women's pelvic health? #gyncsm |
| SandyHiltonPT @SandyHiltonPT All genders! #gynCSM |
| IamCervivor @IamCervivor RT @gyncsm: T2: T2: How do treatments for gynecologic cancers impact women's pelvic health? #gyncsm |
| Christina Lizaso @btrfly12 T2: Gyn cancer treatment usually involves surgery, chemo, and with some gyn cancers radiation. Do surgery and radiation cause the most issues with pelvic health? #gyncsm |
| Dee Sparacio @womenofteal @SandyHiltonPT I didn't realize it affects males and females that until I started researching for this chat. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2: T2: How do treatments for gynecologic cancers impact women's pelvic health? #gyncsm |
| IamCervivor @IamCervivor T2: Treatment for GYN cancers often create issues with other organs & systems in the pelvis. GYN survivors often have bladder/bowel issues after radiotherapy & surgical treatment. #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: T2: T2: Treatment for GYN cancers often create issues with other organs & systems in the pelvis. GYN survivors often have bladder/bowel issues after radiotherapy & surgical treatment. #gyncsm |
| Dee Sparacio @womenofteal T2 Surgery,radiation treatments, chemo all affect pelvic health in different ways . #gyncsm |
| IamCervivor @IamCervivor T2: During #brachytherpay, radiation is applied directly to the cervix. While effective in treating #cervicalcancer, it’s side effects can be devastating to the pelvis and vagina. #gyncsm |
| Christina Lizaso @btrfly12 @SandyHiltonPT Yes! pelvic health is important for men too! Especially male prostate and anal cancer survivors. Should have clarified that response was in relation to tonight's discussion of gynecologic cancers #gyncsm |
 | Sakinah Kaiser (She/Her) @themuslimhippie RT @IamCervivor: T1: T1: Pelvic health is important to overall well-being. It actually encompasses much more than we initially think, including bowel/urinary tract function, sexual health, digestion, even neurology! #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: T2: T2: Treatment for GYN cancers often create issues with other organs & systems in the pelvis. GYN survivors often have bladder/bowel issues after radiotherapy & surgical treatment. #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: T2: T2: During #brachytherpay, radiation is applied directly to the cervix. While effective in treating #cervicalcancer, it’s side effects can be devastating to the pelvis and vagina. #gyncsm |
| IamCervivor @IamCervivor T2: We hear from many women who are awake for #brachytherpay & are traumatized from the procedure. This plays a role later on when the GYN ONC tells them to dilate or have frequent sex. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T2: T2: How do treatments for gynecologic cancers impact women's pelvic health? #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: T2: T2: We hear from many women who are awake for #brachytherpay & are traumatized from the procedure. This plays a role later on when the GYN ONC tells them to dilate or have frequent sex. #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: T2: T2: During #brachytherpay, radiation is applied directly to the cervix. While effective in treating #cervicalcancer, it’s side effects can be devastating to the pelvis and vagina. #gyncsm |
| SandyHiltonPT @SandyHiltonPT @gyncsm It comes down to the question of if the treatments are meeting the needs of the person. Do they know risks and benefits. What are the expected outcomes? #gynCSM |
| Christina Lizaso @btrfly12 RT @IamCervivor: T2: T2: We hear from many women who are awake for #brachytherpay & are traumatized from the procedure. This plays a role later on when the GYN ONC tells them to dilate or have frequent sex. #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @gyncsm T2: The immediate effect I see is that many women say things such as "I am no longer normal there." or "I'm feeling damaged" or they get concerned about potential pain or sexual dysfunction. So, the first impact isn't physical. A feeling of losing pelvic health function #gyncsm |
| Dee Sparacio @womenofteal RT @PelvicGuru1: @gyncsm T2: @gyncsm T2: The immediate effect I see is that many women say things such as "I am no longer normal there." or "I'm feeling damaged" or they get concerned about potential pain or sexual dysfunction. So, the first impact isn't physical. A feeling of losing pelvic health function #gyncsm |
| SandyHiltonPT @SandyHiltonPT RT @btrfly12: @SandyHiltonPT Yes! pelvic health is important for men too! Especially male prostate and anal cancer survivors. Should have clarified that response was in relation to tonight's discussion of gynecologic cancers #gyncsm |
| Christina Lizaso @btrfly12 T2: From treatment for cancer, muscle tension, trigger points and pain and sensitivity associated with scar tissue can arise. https://t.co/ajkWqTNAKO #gyncsm |
| IamCervivor @IamCervivor You are absolutely correct! We totally agree that access to this type of care is imperative! #gyncsm |
| IamCervivor @IamCervivor RT @btrfly12: T2: T2: From treatment for cancer, muscle tension, trigger points and pain and sensitivity associated with scar tissue can arise. https://t.co/ajkWqTNAKO #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: You are absolutely correct! We totally agree that access to this type of care is imperative! #gyncsm |
| Christina Lizaso @btrfly12 RT @PelvicGuru1: @gyncsm T2: @gyncsm T2: The immediate effect I see is that many women say things such as "I am no longer normal there." or "I'm feeling damaged" or they get concerned about potential pain or sexual dysfunction. So, the first impact isn't physical. A feeling of losing pelvic health function #gyncsm |
| Dee Sparacio @womenofteal @AndreaAdella I know many women experience bladder issues and scar tissue after a hysterectomy. @temkins any other issues ? #gyncsm |
| SandyHiltonPT @SandyHiltonPT @AndreaAdella t2: hysterectomy to treat cancer has complications which need proper care. Hormonal Changes in pelvic structure (improved with pelvic Physio for MSK training which has level 1 evidence Bø et al.) #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T2: T2: From treatment for cancer, muscle tension, trigger points and pain and sensitivity associated with scar tissue can arise. https://t.co/ajkWqTNAKO #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T3: What options are there for alleviating pelvic pain? What specialists typically treat pelvic pain? What has been your experience with pelvic pain? #gyncsm |
| Dee Sparacio @womenofteal RT @SandyHiltonPT: @AndreaAdella t2: @AndreaAdella t2: hysterectomy to treat cancer has complications which need proper care. Hormonal Changes in pelvic structure (improved with pelvic Physio for MSK training which has level 1 evidence Bø et al.) #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T3: T3: What options are there for alleviating pelvic pain? What specialists typically treat pelvic pain? What has been your experience with pelvic pain? #gyncsm |
| IamCervivor @IamCervivor RT @SandyHiltonPT: @AndreaAdella t2: @AndreaAdella t2: hysterectomy to treat cancer has complications which need proper care. Hormonal Changes in pelvic structure (improved with pelvic Physio for MSK training which has level 1 evidence Bø et al.) #gyncsm |
| Christina Lizaso @btrfly12 RT @SandyHiltonPT: @AndreaAdella t2: @AndreaAdella t2: hysterectomy to treat cancer has complications which need proper care. Hormonal Changes in pelvic structure (improved with pelvic Physio for MSK training which has level 1 evidence Bø et al.) #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: T3: T3: What options are there for alleviating pelvic pain? What specialists typically treat pelvic pain? What has been your experience with pelvic pain? #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm |
| IamCervivor @IamCervivor T3: Many women in our Cervivor community are finding relief from pelvic pain after working with a Pelvic Floor Therapist. However, for those in more rural areas, they may not have this option. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T3: T3: What options are there for alleviating pelvic pain? What specialists typically treat pelvic pain? What has been your experience with pelvic pain? #gyncsm |
| SandyHiltonPT @SandyHiltonPT Yes, except that trigger points as a “thing” aren’t proven and the concept may be anti-helpful as people think they have a problem (which looks normal). #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: T3: T3: Many women in our Cervivor community are finding relief from pelvic pain after working with a Pelvic Floor Therapist. However, for those in more rural areas, they may not have this option. #gyncsm |
| Christina Lizaso @btrfly12 RT @SandyHiltonPT: Yes, except that trigger points as a “thing” aren’t proven and the concept may be anti-helpful as people think they have a problem (which looks normal). #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: T3: T3: Many women in our Cervivor community are finding relief from pelvic pain after working with a Pelvic Floor Therapist. However, for those in more rural areas, they may not have this option. #gyncsm |
| Dee Sparacio @womenofteal T3 “Pelvic pain can also be related to the presence of scar tissue after abdominal or pelvic surgery.” https://t.co/qK9DM2vccr #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @gyncsm T3: 1) Glad you asked! Not all women's health professionals are trained to deal with pelvic pain conditions. I wish they were...but, there are SO many out there across a variety of professions that are dedicated to helping people with pelvic pain #gyncsm |
| Dee Sparacio @womenofteal RT @PelvicGuru1: @gyncsm T3: @gyncsm T3: 1) Glad you asked! Not all women's health professionals are trained to deal with pelvic pain conditions. I wish they were...but, there are SO many out there across a variety of professions that are dedicated to helping people with pelvic pain #gyncsm |
| SandyHiltonPT @SandyHiltonPT @gyncsm T3: this is my wheelhouse! Pain can change. There is no evidence supporting trigger points as a target of treatment. Pain is protective and does not mean the tissue has an issue. Non-painful sensory integration can inhibit and eliminate a pain response. #gyncsm |
| Dee Sparacio @womenofteal T3 I had pain and bowel issues after my two pelvic/abdominal surgeries and needed to change my diet to include more fiber . #gyncsm |
| Christina Lizaso @btrfly12 T3: Seems like several specialists are involved in overall pelvic health - gynecologist, gastroenterologist, urologist, GI docs and there is even a urogynecologist. Seems like patients would need navigation related to their particular symptoms. #gyncsm |
| IamCervivor @IamCervivor #gyncsm |
| Christina Lizaso @btrfly12 RT @PelvicGuru1: @gyncsm T3: @gyncsm T3: 1) Glad you asked! Not all women's health professionals are trained to deal with pelvic pain conditions. I wish they were...but, there are SO many out there across a variety of professions that are dedicated to helping people with pelvic pain #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T3 “Pelvic pain can also be related to the presence of scar tissue after abdominal or pelvic surgery.” https://t.co/qK9DM2vccr #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T3: T3: Seems like several specialists are involved in overall pelvic health - gynecologist, gastroenterologist, urologist, GI docs and there is even a urogynecologist. Seems like patients would need navigation related to their particular symptoms. #gyncsm |
| IamCervivor @IamCervivor #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @gyncsm T3: 2) So, we highly recommend seeking out professionals who know about pelvic pain. Such as GYNs, Urogynecologists, Urologists, Pelvic Physical Therapists, OTs, NPs (to name a few) who attend conferences or take courses in pelvic pain care. (Such as @PelvicPainOrg #gyncsm |
| Dee Sparacio @womenofteal RT @PelvicGuru1: @gyncsm T3: @gyncsm T3: 2) So, we highly recommend seeking out professionals who know about pelvic pain. Such as GYNs, Urogynecologists, Urologists, Pelvic Physical Therapists, OTs, NPs (to name a few) who attend conferences or take courses in pelvic pain care. (Such as @PelvicPainOrg #gyncsm |
| Christina Lizaso @btrfly12 RT @PelvicGuru1: @gyncsm T3: @gyncsm T3: 2) So, we highly recommend seeking out professionals who know about pelvic pain. Such as GYNs, Urogynecologists, Urologists, Pelvic Physical Therapists, OTs, NPs (to name a few) who attend conferences or take courses in pelvic pain care. (Such as @PelvicPainOrg #gyncsm |
| IamCervivor @IamCervivor #gyncsm |
| SandyHiltonPT @SandyHiltonPT @gyncsm I treat pelvic pain via the evidence on pain. It supports self-efficacy and self-treatment and does not support: Trigger Points Painful treatment Injections #gyncsm |
| Christina Lizaso @btrfly12 T3: Seems there is a lot to try and so to not give up seeking better quality of life after treatment. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T3: T3: Seems there is a lot to try and so to not give up seeking better quality of life after treatment. #gyncsm |
| SandyHiltonPT @SandyHiltonPT RT @btrfly12: T3: T3: Seems there is a lot to try and so to not give up seeking better quality of life after treatment. #gyncsm |
| IamCervivor @IamCervivor #gyncsm |
| Christina Lizaso @btrfly12 Here are just some of the things @MayoClinic lists as pelvic pain treatment options: Medication, Physical therapy, Stretching, massage and other relaxation techniques, TENS, Neurostimulation (spinal cord stimulation), injections and psychotherapy. https://t.co/QmPmvhSOdb #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @gyncsm @PelvicPainOrg T3: As a pelvic physical therapist my experience w/ pain is 1 Patients in pain often feel unheard with pain complaints and we can change this! 2 Pelvic pain is real & there are ways to make a plan together w/ a patient to improve symptoms and self-efficacy 3 There's hope! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4: How does pelvic health impact intimacy and sexual health? What are tips and resources to maintain intimacy and sexuality after gyn cancer? #gyncsm |
| Dee Sparacio @womenofteal RT @PelvicGuru1: @gyncsm @PelvicPainOrg T3: @gyncsm @PelvicPainOrg T3: As a pelvic physical therapist my experience w/ pain is 1 Patients in pain often feel unheard with pain complaints and we can change this! 2 Pelvic pain is real & there are ways to make a plan together w/ a patient to improve symptoms and self-efficacy 3 There's hope! #gyncsm |
| SandyHiltonPT @SandyHiltonPT @btrfly12 Definitely! There is hope and help no matter where you are in the world. Twitter is a good place for finding up to date practitioners! #GynCSM |
| IamCervivor @IamCervivor #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Here are just some of the things @MayoClinic lists as pelvic pain treatment options: Here are just some of the things @MayoClinic lists as pelvic pain treatment options: Medication, Physical therapy, Stretching, massage and other relaxation techniques, TENS, Neurostimulation (spinal cord stimulation), injections and psychotherapy. https://t.co/QmPmvhSOdb #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4: T4: How does pelvic health impact intimacy and sexual health? What are tips and resources to maintain intimacy and sexuality after gyn cancer? #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 RT @btrfly12: T3: T3: Seems there is a lot to try and so to not give up seeking better quality of life after treatment. #gyncsm |
| Christina Lizaso @btrfly12 RT @PelvicGuru1: @gyncsm @PelvicPainOrg T3: @gyncsm @PelvicPainOrg T3: As a pelvic physical therapist my experience w/ pain is 1 Patients in pain often feel unheard with pain complaints and we can change this! 2 Pelvic pain is real & there are ways to make a plan together w/ a patient to improve symptoms and self-efficacy 3 There's hope! #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: T4: T4: How does pelvic health impact intimacy and sexual health? What are tips and resources to maintain intimacy and sexuality after gyn cancer? #gyncsm |
| Christina Lizaso @btrfly12 RT @SandyHiltonPT: @btrfly12 Definitely! There is hope and help no matter where you are in the world. Twitter is a good place for finding up to date practitioners! #GynCSM |
| IamCervivor @IamCervivor T4: It’s hard to feel sexy with pelvic pain. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T4: T4: How does pelvic health impact intimacy and sexual health? What are tips and resources to maintain intimacy and sexuality after gyn cancer? #gyncsm |
| Christina Lizaso @btrfly12 T4: Resource | @GYNCancer Renewing Intimacy & Sexuality after Gynecologic Cancer brochure https://t.co/TcffOkbTPD #gyncsm |
| IamCervivor @IamCervivor T4: We encourage our community to think outside the box when it comes to intimacy & not be ashamed of seeking help. Much like everything else after cancer, you have to find a new normal with your sex life as well. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T4: T4: Resource | @GYNCancer Renewing Intimacy & Sexuality after Gynecologic Cancer brochure https://t.co/TcffOkbTPD #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @btrfly12 T: 3 Yes! The part that is toughest is when a patient sees me years after treatment and says "I was told there's nothing that can be done" or I once heard "aren't you glad I saved your life? That's all we can offer." <GASP> Breaks my heart because there's hope and support #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: T4: T4: We encourage our community to think outside the box when it comes to intimacy & not be ashamed of seeking help. Much like everything else after cancer, you have to find a new normal with your sex life as well. #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: T4: T4: We encourage our community to think outside the box when it comes to intimacy & not be ashamed of seeking help. Much like everything else after cancer, you have to find a new normal with your sex life as well. #gyncsm |
| SandyHiltonPT @SandyHiltonPT @gyncsm As my wise friend @NeilOConnell said years ago “I don’t suppose sex would sound good if your bits hurt” This is important. Restoring intimacy takes time and commitment. I have the pleasure of having sex counselors to refer my patients to. It takes a team. #GynCSM |
| Dee Sparacio @womenofteal T4 " Asking about sexual pain and dyspareunia and performing a thorough physical examination are essential steps to guide management, which must be tailored to individual patient goals. Yes! Tailor treatment to the needs of patients https://t.co/p16cRHFmD3 #gyncsm |
| IamCervivor @IamCervivor T4: Don’t give up on intimacy. Be patient with yourself. If you have a partner, COMMUNICATE. Communication is KEY to finding what will work for you and your partner. #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: T4: T4: Don’t give up on intimacy. Be patient with yourself. If you have a partner, COMMUNICATE. Communication is KEY to finding what will work for you and your partner. #gyncsm |
| Christina Lizaso @btrfly12 I hear too many stories from women who are pretty much left to deal with long-term side effects and left with the impression that they should just be grateful to be alive. #gyncsm |
| IamCervivor @IamCervivor #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T4 " Asking about sexual pain and dyspareunia and performing a thorough physical examination are essential steps to guide management, which must be tailored to individual patient goals. Yes! Tailor treatment to the needs of patients https://t.co/p16cRHFmD3 #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: T4: T4: Don’t give up on intimacy. Be patient with yourself. If you have a partner, COMMUNICATE. Communication is KEY to finding what will work for you and your partner. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T5: What is pelvic physical therapy? How long after pelvic surgery can it be helpful? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T5: T5: What is pelvic physical therapy? How long after pelvic surgery can it be helpful? #gyncsm |
| SandyHiltonPT @SandyHiltonPT @btrfly12 That is so sad. And maybe a good reason for tele-Health. I could talk them through things and help local professionals. #Gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T5: T5: What is pelvic physical therapy? How long after pelvic surgery can it be helpful? #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @gyncsm T4: #SexualHealth IS #pelvichealth. It's important for those who have partners to continue to have all sorts of emotional and touch intimacy. Not just penetration focus. I see so many cases where this changes. #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @gyncsm T4: It was recommended for me to follow excellent work by people like @will2lovedotcom for resources. Check this out at https://t.co/CDnZGA1fUd #gyncsm |
| Dee Sparacio @womenofteal @btrfly12 Yes, you want to feel like you are getting back to normal after treatment and then you find out that there are other issues you have to deal with. A reminder of all your body has been through. #gyncsm |
| Christina Lizaso @btrfly12 T5: Like all physical therapy, pelvic PT can help break up scar tissue, help regain strength and range of motion and help restore function. https://t.co/HbnFOcdnuP #gyncsm |
| Dee Sparacio @womenofteal RT @PelvicGuru1: @gyncsm T4: @gyncsm T4: #SexualHealth IS #pelvichealth. It's important for those who have partners to continue to have all sorts of emotional and touch intimacy. Not just penetration focus. I see so many cases where this changes. #gyncsm |
| Christina Lizaso @btrfly12 RT @PelvicGuru1: @gyncsm T4: @gyncsm T4: #SexualHealth IS #pelvichealth. It's important for those who have partners to continue to have all sorts of emotional and touch intimacy. Not just penetration focus. I see so many cases where this changes. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: @btrfly12 Yes, you want to feel like you are getting back to normal after treatment and then you find out that there are other issues you have to deal with. A reminder of all your body has been through. #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @gyncsm T4: We also have a large global pelvic health directory coming out in about 2-3 weeks (cross fingers!). And we will have categories such as profession, pelvic pain, GYN cancer. It is multidisciplinary!! https://t.co/q5pgB2mcEt #gyncsm |
| Dee Sparacio @womenofteal RT @PelvicGuru1: @gyncsm T4: @gyncsm T4: We also have a large global pelvic health directory coming out in about 2-3 weeks (cross fingers!). And we will have categories such as profession, pelvic pain, GYN cancer. It is multidisciplinary!! https://t.co/q5pgB2mcEt #gyncsm |
| Dee Sparacio @womenofteal @PelvicGuru1 @gyncsm That is great news. Please share it with the #gyncsm community. |
| SandyHiltonPT @SandyHiltonPT @gyncsm Physical therapy is a profession,not an intervention or a technique. What happens in a visit depends on who is the therapist. A pelvic health PT can do a careful (not painful) eval and help set up an individual program. #gyncsm |
| Dee Sparacio @womenofteal RT @SandyHiltonPT: @gyncsm Physical therapy is a profession,not an intervention or a technique. What happens in a visit depends on who is the therapist. A pelvic health PT can do a careful (not painful) eval and help set up an individual program. #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @womenofteal @gyncsm Absolutly, We have been working on it this for many months now and it will be a whole new way of finding pelvic health professionals. The excitement and need for this has been inspiring! #gyncsm #pelvichealth |
| Christina Lizaso @btrfly12 T5: Is pelvic PT something done right after surgery? Can it help even years later? #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: T5: T5: What is pelvic physical therapy? How long after pelvic surgery can it be helpful? #gyncsm |
| Christina Lizaso @btrfly12 RT @PelvicGuru1: @gyncsm T4: @gyncsm T4: We also have a large global pelvic health directory coming out in about 2-3 weeks (cross fingers!). And we will have categories such as profession, pelvic pain, GYN cancer. It is multidisciplinary!! https://t.co/q5pgB2mcEt #gyncsm |
| Christina Lizaso @btrfly12 RT @SandyHiltonPT: @gyncsm Physical therapy is a profession,not an intervention or a technique. What happens in a visit depends on who is the therapist. A pelvic health PT can do a careful (not painful) eval and help set up an individual program. #gyncsm |
| Dee Sparacio @womenofteal T4 @PelvicGuru1 website explains what pelvic physical therapy is https://t.co/p6VnKv163t #gyncsm |
| IamCervivor @IamCervivor RT @SandyHiltonPT: @gyncsm Physical therapy is a profession,not an intervention or a technique. What happens in a visit depends on who is the therapist. A pelvic health PT can do a careful (not painful) eval and help set up an individual program. #gyncsm |
| SandyHiltonPT @SandyHiltonPT @womenofteal @PelvicGuru1 @gyncsm You can also find excellent people at @APTAtweets @womens_PT @HermanWallace and ask her on twitter with #pelvicmafia for #globalPT that isn’t based on payment or membership #gyncsm |
| IamCervivor @IamCervivor RT @PelvicGuru1: @womenofteal @gyncsm Absolutly, We have been working on it this for many months now and it will be a whole new way of finding pelvic health professionals. The excitement and need for this has been inspiring! #gyncsm #pelvichealth |
| GYN Cancer | #GYNCSM @gyncsm Last topic... T6: What are some pelvic health resources for those impacted by cancer-related diagnoses? What have you found helpful? #gyncsm |
| Dee Sparacio @womenofteal RT @SandyHiltonPT: @womenofteal @PelvicGuru1 @gyncsm You can also find excellent people at @APTAtweets @womens_PT @HermanWallace and ask her on twitter with #pelvicmafia for #globalPT that isn’t based on payment or membership #gyncsm |
| IamCervivor @IamCervivor Wonderful resource! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Last topic... T6: What are some pelvic health resources for those impacted by cancer-related diagnoses? What have you found helpful? #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @gyncsm T5: Love this question because so many people still don't realize that there are physical therapists who specialize & care for pelvic health conditions. Doing this 20 years and my mentors many more. Patients often say "WHY didn't I know this type of care existed before!?" #gyncsm |
| IamCervivor @IamCervivor RT @SandyHiltonPT: @womenofteal @PelvicGuru1 @gyncsm You can also find excellent people at @APTAtweets @womens_PT @HermanWallace and ask her on twitter with #pelvicmafia for #globalPT that isn’t based on payment or membership #gyncsm |
| SandyHiltonPT @SandyHiltonPT @btrfly12 T5: there is no time limit to recovering health! #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: Last topic... T6: What are some pelvic health resources for those impacted by cancer-related diagnoses? What have you found helpful? #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @gyncsm T5: Typically, there's a recommendation to wait at least 6-8 weeks after a gyn surgery to do any type of internal/vaginal assessments/treatments for pelvic PT, but there's so much we can do even before that in terms of movement, touch, education, etc. #gyncsm |
| Dee Sparacio @womenofteal @PelvicGuru1 @gyncsm I read at @Norton_Health" More than 40 percent of women between the ages of 60 and 79 and at least half of women age 80 and older have a pelvic disorder." so you would think more women would know about it. #gyncsm |
| Christina Lizaso @btrfly12 In addition to those organizations and practitioners joining along on #gyncsm, many find the @hystersisters site - not a nonprofit btw and does have ads - helpful. https://t.co/BYi3PiGezt |
| Dee Sparacio @womenofteal @SandyHiltonPT @btrfly12 Love this answer. #gyncsm |
| Christina Lizaso @btrfly12 RT @PelvicGuru1: @gyncsm T5: @gyncsm T5: Typically, there's a recommendation to wait at least 6-8 weeks after a gyn surgery to do any type of internal/vaginal assessments/treatments for pelvic PT, but there's so much we can do even before that in terms of movement, touch, education, etc. #gyncsm |
| Dee Sparacio @womenofteal RT @PelvicGuru1: @gyncsm T5: @gyncsm T5: Typically, there's a recommendation to wait at least 6-8 weeks after a gyn surgery to do any type of internal/vaginal assessments/treatments for pelvic PT, but there's so much we can do even before that in terms of movement, touch, education, etc. #gyncsm |
| Christina Lizaso @btrfly12 RT @SandyHiltonPT: @btrfly12 T5: @btrfly12 T5: there is no time limit to recovering health! #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: @PelvicGuru1 @gyncsm I read at @Norton_Health" More than 40 percent of women between the ages of 60 and 79 and at least half of women age 80 and older have a pelvic disorder." so you would think more women would know about it. #gyncsm |
| IamCervivor @IamCervivor RT @PelvicGuru1: @gyncsm T5: @gyncsm T5: Typically, there's a recommendation to wait at least 6-8 weeks after a gyn surgery to do any type of internal/vaginal assessments/treatments for pelvic PT, but there's so much we can do even before that in terms of movement, touch, education, etc. #gyncsm |
| Christina Lizaso @btrfly12 RT @PelvicGuru1: @gyncsm T5: @gyncsm T5: Love this question because so many people still don't realize that there are physical therapists who specialize & care for pelvic health conditions. Doing this 20 years and my mentors many more. Patients often say "WHY didn't I know this type of care existed before!?" #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: @PelvicGuru1 @gyncsm I read at @Norton_Health" More than 40 percent of women between the ages of 60 and 79 and at least half of women age 80 and older have a pelvic disorder." so you would think more women would know about it. #gyncsm |
| SandyHiltonPT @SandyHiltonPT @womenofteal @PelvicGuru1 @gyncsm @Norton_Health They feel like it’s inevitable. We are changing that! #pelvicmafia #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @SandyHiltonPT @womenofteal @gyncsm @APTAtweets @womens_PT @HermanWallace That's the beauty of our multidisciplinary global pelvic directory. It is totally FREE for any and all professionals (unless they want to join other parts). #gyncsm We've had such great feedback about this feature with thousands joining. We have truly appreciated all the support |
| GYN Cancer | #GYNCSM @gyncsm Lots of great information tonight. Time to start sharing closing thoughts on today's topic. We like to start the tweets with “TIL:” standing for Today I Learned... #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm |
| Dee Sparacio @womenofteal T6 I found this @DanaFarber info helpful https://t.co/ToPhwtQN1T #gyncsm |
| Tracy Sher, DPT @PelvicGuru1 @AndreaAdella @gyncsm Andrea - YES, for sure. In an ideal world, they would come see us before or during tx and after surgery. And.. we now have direct access almost all states, so patients can go directly to a pelvic PT now without a referral if they choose. #gyncsm |
| Dee Sparacio @womenofteal RT @PelvicGuru1: @AndreaAdella @gyncsm Andrea - YES, for sure. In an ideal world, they would come see us before or during tx and after surgery. And.. we now have direct access almost all states, so patients can go directly to a pelvic PT now without a referral if they choose. #gyncsm |
| Christina Lizaso @btrfly12 A study back in 2015 - not sure what the protocol is for referring out to specialists: Gynecologic cancers predict coexisting pelvic floor disorders Publish date: March 30, 2015 https://t.co/S4CZU1S9D7 #gyncsm |
| Dee Sparacio @womenofteal TIL there are pelvic physical therapist pelvic health ready to help with any of the varied pelvic disorders that come from treating a gyn cancer . #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thanks to all joined in and shared their knowledge and their experience! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks to all joined in and shared their knowledge and their experience! #gyncsm |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources. #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources. #gyncsm |
| SandyHiltonPT @SandyHiltonPT All over the world! If you can’t find someone, ask here! #gyncsm |
| Dee Sparacio @womenofteal As we hold our last chat of 2018 I am especially grateful for my #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte |
| GYN Cancer | #GYNCSM @gyncsm Thanks also to all those who listened along. Hope you learned something new about tonight's topic. I know Dee and I did. <CL #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: As we hold our last chat of 2018 I am especially grateful for my #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm community chats monthly. Our next chat is on Wed Jan 9, 2019 at 9pmET on "Vaccines in Cancer Care and Risk Reduction" #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm community chats monthly. Our next chat is on Wed Jan 9, 2019 at 9pmET on "Vaccines in Cancer Care and Risk Reduction" #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Wishing you all a peaceful and joyous Holiday Season! #gyncsm [image] https://t.co/3Vww1wn6Xh |
| Christina Lizaso @btrfly12 RT @gyncsm: The #gyncsm community chats monthly. Our next chat is on Wed Jan 9, 2019 at 9pmET on "Vaccines in Cancer Care and Risk Reduction" #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Wishing you all a peaceful and joyous Holiday Season! #gyncsm [image] https://t.co/3Vww1wn6Xh |
| Christina Lizaso @btrfly12 RT @gyncsm: Wishing you all a peaceful and joyous Holiday Season! #gyncsm [image] https://t.co/3Vww1wn6Xh |
| GYN Cancer | #GYNCSM @gyncsm Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
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