#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer care. I’ll be moderating as @gyncsm today. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| Dee Sparacio @womenofteal RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Sarah Temkin @temkins RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| Dee Sparacio @womenofteal Dee here! Dx with #ovca Stage3B 2005, recurrence 2008, Ovarian Cancer research advocate, blogger, co-Author of “100 Questions and Answers about Ovarian cancer” & co-moderator #gyncsm |
 | Elixir Fund @elixirfund Meg from Elixir Fund. We provide comfort care and support to patients and caregivers. "#gyncsm" |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
| Dee Sparacio @womenofteal @elixirfund So glad you could join us Meg. #gyncsm |
 | Jillosopher, BSN, RN @jillosopher @gyncsm Good evening #gyncsm Just marked 5 years since dx. Stage 3a endometriod ca. |
| Dee Sparacio @womenofteal RT @gyncsm: If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their experiences and perspectives. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
 | Tobey @BRCAinfo Hi everyone. Tobey here… consumer advocate for cancer research #gyncsm |
| Dee Sparacio @womenofteal @jillosopher @gyncsm Great news ! Thanks for joining us. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their experiences and perspectives. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| Sarah Temkin @temkins RT @RossFH: Exploratory analysis of ICON8 finds that 62% of #ovariancancer patients had a complete or partial response to neoadjuvant chemotherapy — valuable prospective data re: the effectivenss of NACT. @TheLancetOncol #gyncsm #oncoalert https://t.co/o7O2p9J2hg https://t.co/fsuVYZkxBB |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
| Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
 | Albert Santiago @RobertS31269277 RT @MayoCancerCare: A modern approach to #EndometrialCancer care: molecular risk stratification, targeted therapy and team science: A modern approach to #EndometrialCancer care: molecular risk stratification, targeted therapy and team science: https://t.co/sk2jvwgEcW #gyncsm https://t.co/MQRmVxnvO4 |
 | Debra Hallisey @advocatemomdad Deb Hallisey here, supporter of #gyncsm |
| Dee Sparacio @womenofteal @BRCAinfo Thanks for joining us again Tobey! #gyncsm |
| Tobey @BRCAinfo @jillosopher @gyncsm Congrats 🎉 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Welcome to all those joining and “listening in”. Be sure to tweet #gyncsm so we know you are here. You can always tweet, DM or email us with questions/comments after the chat is over. https://t.co/XYaP3OTgsG |
| Dee Sparacio @womenofteal @advocatemomdad Hi Deb- So glad you could stop by. Hope you are well. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information.#gyncsm |
 | Cancer Hope Network @CancerHopeNet And we're off! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight on #gyncsm we’ll be discussing “Finding Emotional Support”. |
| Dee Sparacio @womenofteal RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Finding Emotional Support”. |
| Tobey @BRCAinfo RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Finding Emotional Support”. |
| Dee Sparacio @womenofteal Thank you to all who have tweeted valuable information to our community during the past month using the #gyncsm hashtag and those who helped promote tonight's chat. |
| GYN Cancer | #GYNCSM @gyncsm We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. #gyncsm |
 | Sarah Cassidy @CassidyFish2 Sarah from @CancerHopeNet, from chilly-warm New Jersey. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm You can find the 8 topic areas we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/CmKcd1s96k T1: coming up... |
| Dee Sparacio @womenofteal RT @gyncsm: We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T1: What are some of the emotions that come with a cancer-related diagnosis? How have yours changed over time? #gyncsm |
| Dee Sparacio @womenofteal @CassidyFish2 @CancerHopeNet Hi Sarah - So glad you could join tonight. Hope you are doing well my friend. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: You can find the 8 topic areas we’ll cover on today’s chat on our #gyncsm blog page: You can find the 8 topic areas we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/CmKcd1s96k T1: coming up... |
| Dee Sparacio @womenofteal RT @gyncsm: T1: T1: What are some of the emotions that come with a cancer-related diagnosis? How have yours changed over time? #gyncsm |
 | IJGC @IJGConline What are your thoughts on #HIPEC for #OvarianCancer? Is it ready for prime time ? 🧐 Read commentary 👇 🔗 https://t.co/nIVYAAdy9E @IGCSociety @ESGO_society @IJGCfellows @pedroramirezMD @TeamOvary_MSK @zivanovicmd @BatistaTP #GynCancer #Surgery #gyncsm @agz_eriksson |
| Tobey @BRCAinfo @gyncsm T1. Shock, fear, anxiety #gyncsm |
| Sarah Cassidy @CassidyFish2 @CancerHopeNet Ooops - already not following directions! Ovarian caregiver and dedicated pan-cancer advocate. #gyncsm |
| Dee Sparacio @womenofteal T1 Mine ran the gamut – shock,fear,sadness,anger,grief, and also gratitude for living close to an NCI comprehensive Cancer Center. #gyncsm |
 | Dr. Alon D Altman @DrAlonAltman RT @IJGConline: What are your thoughts on #HIPEC for #OvarianCancer? Is it ready for prime time ? 🧐 Read commentary 👇 🔗 https://t.co/nIVYAAdy9E @IGCSociety @ESGO_society @IJGCfellows @pedroramirezMD @TeamOvary_MSK @zivanovicmd @BatistaTP #GynCancer #Surgery #gyncsm @agz_eriksson |
| Christina Lizaso @btrfly12 T1: Is overwhelmed an emotion? When I found out I had the genetic mutation behind all the cancer in the family, it felt good to know but also terrible. I now feel like a fell into a no-mans-land in healthcare. #gyncsm |
| Tobey @BRCAinfo @gyncsm T1. I don’t know why I was so surprised now looking back! Fear has passed as well #gyncsm |
 | Martina Murphy, MD @DrMMurphy @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi! Martina Murphy - gyn onc MD @UFHealthCancer & also passionate about #sexualhealth after cancer. First time following along in real time - love learning from this community. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T1: T1: Is overwhelmed an emotion? When I found out I had the genetic mutation behind all the cancer in the family, it felt good to know but also terrible. I now feel like a fell into a no-mans-land in healthcare. #gyncsm |
 | UAB OB/GYN Residency Program @UABobgynres RT @TeamEndo_MSK: Such an honor to have the Chair of @UABOBGYN & past @SGO_org president, Dr. @WarnerHuhUAB at this month's @NYOB_Society meeting! 🎉 Thanks @leitaomd for organizing! #gyncsm #cervicalcancer #HPV #gynoncology @UABobgynres @ONealCancerUAB @ASCCP @TeamOvary_MSK @GYNCancer https://t.co/tTqVdshnIt |
| Dee Sparacio @womenofteal RT @BRCAinfo: @gyncsm T1. I don’t know why I was so surprised now looking back! Fear has passed as well #gyncsm |
| Sarah Cassidy @CassidyFish2 @DrMMurphy @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte @UFHealthCancer Welcome, Martina! It's even more fun live. #gyncsm |
| Dee Sparacio @womenofteal @DrMMurphy @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte @UFHealthCancer So glad you are able to join us in real time tonight Dr Murphy. #gyncsm |
| Christina Lizaso @btrfly12 I think it is important to remember that all emotions are okay. Everyone's reactions will be different. #gyncsm |
 | Georgia @_GeorgiaHurst RT @btrfly12: T1: T1: Is overwhelmed an emotion? When I found out I had the genetic mutation behind all the cancer in the family, it felt good to know but also terrible. I now feel like a fell into a no-mans-land in healthcare. #gyncsm |
| Dee Sparacio @womenofteal T1 continued Fear of recurrence comes and goes even so many years after diagnosis. Right up there with Scanxiety #gyncsm |
| Christina Lizaso @btrfly12 I think guilt is there too. What could I have done differently? What will this mean for my kids? #gyncsm |
| Georgia @_GeorgiaHurst Good evening, everyone. I'm Georgia, a previvor with #Lynchsyndrome. Hope you're all well, looking forward to this #gyncsm. |
| Christina Lizaso @btrfly12 RT @womenofteal: T1 continued Fear of recurrence comes and goes even so many years after diagnosis. Right up there with Scanxiety #gyncsm |
| Sarah Cassidy @CassidyFish2 And so often, different depending on the moment. #gyncsm |
| Georgia @_GeorgiaHurst RT @DrMMurphy: @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi! Martina Murphy - gyn onc MD @UFHealthCancer & also passionate about #sexualhealth after cancer. First time following along in real time - love learning from this community. #gyncsm |
| Tobey @BRCAinfo @womenofteal I’m right there with you! #gyncsm |
| Dee Sparacio @womenofteal Agree 100% - and emotions can happen at different times for different people. #gyncsm |
| Christina Lizaso @btrfly12 @_GeorgiaHurst Hi :) #gyncsm https://t.co/W27J56OJIZ |
| GYN Cancer | #GYNCSM @gyncsm T2: When you have needed emotional support, who did you reach out to? Was your healthcare team involved? #gyncsm |
| Debra Hallisey @advocatemomdad T1 #gyncsm Do you have to fight to not take on other peoples emotions given how big yours must be? |
| Dee Sparacio @womenofteal RT @btrfly12: I think guilt is there too. What could I have done differently? What will this mean for my kids? #gyncsm |
| Dee Sparacio @womenofteal @_GeorgiaHurst Hi Georgia - Happy to have you join us. #gyncsm |
| Dee Sparacio @womenofteal RT @CassidyFish2: And so often, different depending on the moment. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2: T2: When you have needed emotional support, who did you reach out to? Was your healthcare team involved? #gyncsm |
| Tobey @BRCAinfo @gyncsm T2. Family, friends, fellow advocates, 100% healthcare team #gyncsm |
| Debra Hallisey @advocatemomdad T2 Did you realize right away you needed emotional support or was that a gradual realization? #gyncsm |
 | Melissa Cole @ColeFACHE Just a bit late to the party 🥳 #gyncsm Here from NM, dx w/#Stage4 #OvarianCancer late 2020, mets in lungs. Working FT as grad prof in nursing 🙌 |
| Christina Lizaso @btrfly12 T2: I'm not real great about reaching out when I need support. I don't think I've talked about mental health or emotional health with any of my doctors. #gyncsm |
| Dee Sparacio @womenofteal @advocatemomdad I think we feel different emotions with family than we might with others. And we feel their emotions along with ours. I know I for one tried not to upset my family. #gyncsm |
| Sarah Cassidy @CassidyFish2 @advocatemomdad Such a good point. I feel that's a place where caregivers can/should help - as a buffer when the well-meaning share too much of their own emotions with the patient. #gyncsm |
| Jillosopher, BSN, RN @jillosopher T2: I ended up not reaching out a lot. Part who I am. Part because my best friend was in end stage MBC. My husband was my rock, but I know he was overwhelmed, too #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: @advocatemomdad I think we feel different emotions with family than we might with others. And we feel their emotions along with ours. I know I for one tried not to upset my family. #gyncsm |
| Dee Sparacio @womenofteal T2 When I was first dx Family was the first support then I reach out to @CancerHopeNet and spoke one-on-one volunteer after seeing a flyer in my cancer ctr. Support groups at @RutgersCancer & @Cr4Hope helped me through the years. #gyncsm |
| Dee Sparacio @womenofteal @ColeFACHE Welcome ! #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T2: T2: I'm not real great about reaching out when I need support. I don't think I've talked about mental health or emotional health with any of my doctors. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm : |
| Dee Sparacio @womenofteal RT @CassidyFish2: @advocatemomdad Such a good point. I feel that's a place where caregivers can/should help - as a buffer when the well-meaning share too much of their own emotions with the patient. #gyncsm |
| Dee Sparacio @womenofteal RT @jillosopher: T2: T2: I ended up not reaching out a lot. Part who I am. Part because my best friend was in end stage MBC. My husband was my rock, but I know he was overwhelmed, too #gyncsm |
| Melissa Cole @ColeFACHE T2: blessed to have a friend introduce me to @stepsthrough https://t.co/N3fV62ITW2 They offer FREE counseling for OC patients and caregivers 😃👏❤️ |
| GYN Cancer | #GYNCSM @gyncsm T3: What do you see as some of the impacts that the global pandemic is having on the emotional needs of those facing a cancer-related diagnosis? How has the pandemic impacted your need for emotional support? #gyncsm |
| Cancer Hope Network @CancerHopeNet We find that's a place where care teams and #peersupport orgs can help - it's easier to have the conversation if your doctor is suggesting a resource like CHN. Validation for your feelings - and permission to share them. #gyncsm |
| Christina Lizaso @btrfly12 T3: Cancer is super isolating to begin with! I guess I think every emotion has got to be more intense when people are already stressed and stretched emotionally. #gyncsm |
| Dee Sparacio @womenofteal @advocatemomdad For me it was about 2 months after my surgery and the start of chemo when I realized I needed to talk to another survivor. #gyncsm |
| Christina Lizaso @btrfly12 RT @CancerHopeNet: We find that's a place where care teams and #peersupport orgs can help - it's easier to have the conversation if your doctor is suggesting a resource like CHN. Validation for your feelings - and permission to share them. #gyncsm |
| Melissa Cole @ColeFACHE Oops meant to tag #gyncsm 🤦🏼♀️ |
| Sarah Temkin @temkins A2: We sometime stigmatized patients (especially women) for having mental health need including self-censorship. Your care team should be there to help you find the support you need. |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm : #gyncsm : |
| Dee Sparacio @womenofteal RT @gyncsm: T3: T3: What do you see as some of the impacts that the global pandemic is having on the emotional needs of those facing a cancer-related diagnosis? How has the pandemic impacted your need for emotional support? #gyncsm |
| Dee Sparacio @womenofteal RT @CancerHopeNet: We find that's a place where care teams and #peersupport orgs can help - it's easier to have the conversation if your doctor is suggesting a resource like CHN. Validation for your feelings - and permission to share them. #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm - |
| Dee Sparacio @womenofteal RT @btrfly12: T3: T3: Cancer is super isolating to begin with! I guess I think every emotion has got to be more intense when people are already stressed and stretched emotionally. #gyncsm |
| Jillosopher, BSN, RN @jillosopher T3: Can't image how hard it must be to go through treatment now during the pandemic, being immunosuppressed, having visitor restrictions. I miss having my husband with me during routine followups #gyncsm |
| Tobey @BRCAinfo @btrfly12 Agree. Also, people are afraid of being in groups which make it more isolating when seeking help #gyncsm |
| Christina Lizaso @btrfly12 T3: I get scanxiety around my scans and tests and I've certainly felt a bit less capable of coping than normal the last few years. #gyncsm |
| Tobey @BRCAinfo RT @btrfly12: T3: T3: Cancer is super isolating to begin with! I guess I think every emotion has got to be more intense when people are already stressed and stretched emotionally. #gyncsm |
| Christina Lizaso @btrfly12 RT @BRCAinfo: @btrfly12 Agree. Also, people are afraid of being in groups which make it more isolating when seeking help #gyncsm |
| Christina Lizaso @btrfly12 RT @jillosopher: T3: T3: Can't image how hard it must be to go through treatment now during the pandemic, being immunosuppressed, having visitor restrictions. I miss having my husband with me during routine followups #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm - |
| GYN Cancer | #GYNCSM @gyncsm T4: Based on your experience and perspective, what types of emotional support do patients need most and what areas do you see as lacking adequate resources? #gyncsm |
| Dee Sparacio @womenofteal T3 Added Covid to a cancer dx can be overwhelming. But I found that when support groups switched to zoom /online I felt better being able to stay in touch with others. #gyncsm |
| Dee Sparacio @womenofteal RT @jillosopher: T3: T3: Can't image how hard it must be to go through treatment now during the pandemic, being immunosuppressed, having visitor restrictions. I miss having my husband with me during routine followups #gyncsm |
 | CCapeMymms🇺🇦❤️🇺🇸 @MymmsStarbase RT @_GeorgiaHurst: Good evening, everyone. I'm Georgia, a previvor with #Lynchsyndrome. Hope you're all well, looking forward to this #gyncsm. |
| Christina Lizaso @btrfly12 RT @gyncsm: T4: T4: Based on your experience and perspective, what types of emotional support do patients need most and what areas do you see as lacking adequate resources? #gyncsm |
| Dee Sparacio @womenofteal RT @temkins: A2: A2: We sometime stigmatized patients (especially women) for having mental health need including self-censorship. Your care team should be there to help you find the support you need. |
| Dee Sparacio @womenofteal RT @gyncsm: T4: T4: Based on your experience and perspective, what types of emotional support do patients need most and what areas do you see as lacking adequate resources? #gyncsm |
| Debra Hallisey @advocatemomdad RT @womenofteal: @advocatemomdad I think we feel different emotions with family than we might with others. And we feel their emotions along with ours. I know I for one tried not to upset my family. #gyncsm |
| Debra Hallisey @advocatemomdad RT @CassidyFish2: @advocatemomdad Such a good point. I feel that's a place where caregivers can/should help - as a buffer when the well-meaning share too much of their own emotions with the patient. #gyncsm |
 | Lindsey McAlarnen, MD, FACOG @LAMcAlarnenMD @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi! I’m Lindsey, #gynonc #fellow @MCWCancerCenter #gyncsm |
| Debra Hallisey @advocatemomdad RT @womenofteal: T2 When I was first dx Family was the first support then I reach out to @CancerHopeNet and spoke one-on-one volunteer after seeing a flyer in my cancer ctr. Support groups at @RutgersCancer & @Cr4Hope helped me through the years. #gyncsm |
| Cancer Hope Network @CancerHopeNet @BRCAinfo @btrfly12 So true! We've seen a significant increase in requests for support since March 2020 as people look for safer ways to connect. (Our peer support is provided by phone.) #gyncsm |
| Tobey @BRCAinfo @gyncsm T4. It’s comforting to talk to survivors of your specific cancer. They totally understand what you are going through & are a good resource for hope & info #gyncsm |
| Debra Hallisey @advocatemomdad RT @CancerHopeNet: We find that's a place where care teams and #peersupport orgs can help - it's easier to have the conversation if your doctor is suggesting a resource like CHN. Validation for your feelings - and permission to share them. #gyncsm |
| Christina Lizaso @btrfly12 T4: As someone mentioned, it is important that doctors make referrals and be the one to bring it up. Open the door for that conversation. I see the “we saved your life, now you are on your own” kind of experience changing but a ways to go re: whole-person healthcare #gyncsm |
| Christina Lizaso @btrfly12 RT @BRCAinfo: @gyncsm T4. It’s comforting to talk to survivors of your specific cancer. They totally understand what you are going through & are a good resource for hope & info #gyncsm |
| Debra Hallisey @advocatemomdad RT @womenofteal: @advocatemomdad For me it was about 2 months after my surgery and the start of chemo when I realized I needed to talk to another survivor. #gyncsm |
| Dee Sparacio @womenofteal T4 For me I needed more help after I finished treatment handling the emotions - not seeing my gyn onc as frequently I admit freaked me out a bit. I needed a way to handle the fear of recurrence. #gyncsm |
| Sarah Cassidy @CassidyFish2 RT @btrfly12: T4: T4: As someone mentioned, it is important that doctors make referrals and be the one to bring it up. Open the door for that conversation. I see the “we saved your life, now you are on your own” kind of experience changing but a ways to go re: whole-person healthcare #gyncsm |
| Christina Lizaso @btrfly12 RT @CancerHopeNet: @BRCAinfo @btrfly12 So true! We've seen a significant increase in requests for support since March 2020 as people look for safer ways to connect. (Our peer support is provided by phone.) #gyncsm |
| Debra Hallisey @advocatemomdad RT @jillosopher: T3: T3: Can't image how hard it must be to go through treatment now during the pandemic, being immunosuppressed, having visitor restrictions. I miss having my husband with me during routine followups #gyncsm |
| Dee Sparacio @womenofteal @LAMcAlarnenMD @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte @MCWCancerCenter Thanks for joining us tonight! #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T4 For me I needed more help after I finished treatment handling the emotions - not seeing my gyn onc as frequently I admit freaked me out a bit. I needed a way to handle the fear of recurrence. #gyncsm |
| Georgia @_GeorgiaHurst @gyncsm T4. #gyncsm I think many woman do seek out some sort of support -- it's the men who have #hereditarycancersyndromes that concern me the most. They just don't want to talk about it or deal with it. #Lynchsyndrome |
| Dee Sparacio @womenofteal RT @CancerHopeNet: @BRCAinfo @btrfly12 So true! We've seen a significant increase in requests for support since March 2020 as people look for safer ways to connect. (Our peer support is provided by phone.) #gyncsm |
| Dee Sparacio @womenofteal RT @BRCAinfo: @gyncsm T4. It’s comforting to talk to survivors of your specific cancer. They totally understand what you are going through & are a good resource for hope & info #gyncsm |
| Melissa Cole @ColeFACHE @gyncsm #gyncsm T4: once I was done with frontline chemo, then radiation…now on Keytruda, I find myself tired. I powered through so much. Now managing the marathon is more difficult. Others? |
| Dee Sparacio @womenofteal RT @btrfly12: T4: T4: As someone mentioned, it is important that doctors make referrals and be the one to bring it up. Open the door for that conversation. I see the “we saved your life, now you are on your own” kind of experience changing but a ways to go re: whole-person healthcare #gyncsm |
| Christina Lizaso @btrfly12 RT @_GeorgiaHurst: @gyncsm T4. #gyncsm I think many woman do seek out some sort of support -- it's the men who have #hereditarycancersyndromes that concern me the most. They just don't want to talk about it or deal with it. #Lynchsyndrome |
| Dee Sparacio @womenofteal RT @_GeorgiaHurst: @gyncsm T4. #gyncsm I think many woman do seek out some sort of support -- it's the men who have #hereditarycancersyndromes that concern me the most. They just don't want to talk about it or deal with it. #Lynchsyndrome |
| Jillosopher, BSN, RN @jillosopher T4: Good question. I find I'm not getting the support I need, a counselor who knows about cancer. At 5 yrs post, I feel push back, as in "aren't you over it by now?" But I need something like I haven't before for the grief of it all. #gyncsm |
| Debra Hallisey @advocatemomdad RT @BRCAinfo: @gyncsm T4. It’s comforting to talk to survivors of your specific cancer. They totally understand what you are going through & are a good resource for hope & info #gyncsm |
| Debra Hallisey @advocatemomdad RT @btrfly12: T4: T4: As someone mentioned, it is important that doctors make referrals and be the one to bring it up. Open the door for that conversation. I see the “we saved your life, now you are on your own” kind of experience changing but a ways to go re: whole-person healthcare #gyncsm |
| Tobey @BRCAinfo RT @_GeorgiaHurst: @gyncsm T4. #gyncsm I think many woman do seek out some sort of support -- it's the men who have #hereditarycancersyndromes that concern me the most. They just don't want to talk about it or deal with it. #Lynchsyndrome |
| Debra Hallisey @advocatemomdad RT @womenofteal: T4 For me I needed more help after I finished treatment handling the emotions - not seeing my gyn onc as frequently I admit freaked me out a bit. I needed a way to handle the fear of recurrence. #gyncsm |
| Christina Lizaso @btrfly12 T4: I've heard finding counselors with cancer patient experience can be a bit hard. And then it still needs to be a good fit even if they do have that experience. People tend to want you to get over things fast. That shouldn't include your therapist... #gyncsm |
| Debra Hallisey @advocatemomdad RT @jillosopher: T4: T4: Good question. I find I'm not getting the support I need, a counselor who knows about cancer. At 5 yrs post, I feel push back, as in "aren't you over it by now?" But I need something like I haven't before for the grief of it all. #gyncsm |
| Dee Sparacio @womenofteal Exactly. I was geared up to get through the treatments but felt it was harder to cope after . #gyncsm |
| Tobey @BRCAinfo @jillosopher Are you with a cancer center? #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T5: What have you found to be most helpful in providing emotional support? In-person or virtual support groups, other online platforms, one-on-one peer support, friends/family, counseling, other? #gyncsm |
| Jillosopher, BSN, RN @jillosopher T4: Yes, this right here. My cancer center was great that first year post treatment, with referral to therapist. Now I sense they are impatient with me. #gyncsm |
| Tobey @BRCAinfo RT @btrfly12: T4: T4: I've heard finding counselors with cancer patient experience can be a bit hard. And then it still needs to be a good fit even if they do have that experience. People tend to want you to get over things fast. That shouldn't include your therapist... #gyncsm |
| Sarah Cassidy @CassidyFish2 @gyncsm T4. Support at different stages - early dx, active treatment, survivorship - matters. Long-term survivors like @womenofteal provide such comfort to women facing challenges when "normal life" is actually "new normal." #gyncsm |
| Jillosopher, BSN, RN @jillosopher @BRCAinfo Yes #gyncsm |
| Christina Lizaso @btrfly12 There is grief involved and grief takes time to process. Sometimes the grief comes late into the experience I think. #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @btrfly12: T4: T4: As someone mentioned, it is important that doctors make referrals and be the one to bring it up. Open the door for that conversation. I see the “we saved your life, now you are on your own” kind of experience changing but a ways to go re: whole-person healthcare #gyncsm |
| Tobey @BRCAinfo @gyncsm T5. All of the above for me #gyncsm |
| Debra Hallisey @advocatemomdad Emotional support should not end after treatments end. You are changed and need to figure out who you are NOW. #gyncsm |
| Lindsey McAlarnen, MD, FACOG @LAMcAlarnenMD @womenofteal Any specific recommendations of groups doing virtual support groups that I could compile a list for our patients? #gyncsm |
| Dee Sparacio @womenofteal @jillosopher Yup, Folks expect us to get over it. Not so easy. We change physically and have so many teal sisters we meet along the way pass away- it is difficult. #gyncsm |
| Debra Hallisey @advocatemomdad RT @jillosopher: T4: T4: Yes, this right here. My cancer center was great that first year post treatment, with referral to therapist. Now I sense they are impatient with me. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T4: T4: I've heard finding counselors with cancer patient experience can be a bit hard. And then it still needs to be a good fit even if they do have that experience. People tend to want you to get over things fast. That shouldn't include your therapist... #gyncsm |
| Christina Lizaso @btrfly12 T5: Important to remember support can come in many shapes and forms. Maybe a traditional support group isn't for you, but volunteering at an animal shelter fills your needs. #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: T4: T4: As someone mentioned, it is important that doctors make referrals and be the one to bring it up. Open the door for that conversation. I see the “we saved your life, now you are on your own” kind of experience changing but a ways to go re: whole-person healthcare #gyncsm |
| Tobey @BRCAinfo RT @CassidyFish2: @gyncsm T4. Support at different stages - early dx, active treatment, survivorship - matters. Long-term survivors like @womenofteal provide such comfort to women facing challenges when "normal life" is actually "new normal." #gyncsm |
| Debra Hallisey @advocatemomdad RT @btrfly12: There is grief involved and grief takes time to process. Sometimes the grief comes late into the experience I think. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T5: T5: What have you found to be most helpful in providing emotional support? In-person or virtual support groups, other online platforms, one-on-one peer support, friends/family, counseling, other? #gyncsm |
| Christina Lizaso @btrfly12 RT @advocatemomdad: Emotional support should not end after treatments end. You are changed and need to figure out who you are NOW. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: There is grief involved and grief takes time to process. Sometimes the grief comes late into the experience I think. #gyncsm |
| Dee Sparacio @womenofteal RT @advocatemomdad: Emotional support should not end after treatments end. You are changed and need to figure out who you are NOW. #gyncsm |
| Christina Lizaso @btrfly12 I prefer online platforms like @smart_patients and @facingourrisk discussion boards. I do better in written formats like Twitter :) #gyncsm |
| Martina Murphy, MD @DrMMurphy @btrfly12 So well said 🙏🏼 And to your earlier point, grief looks different for everyone. We can certainly do better at honoring that as clinicians. #gyncsm |
| Tobey @BRCAinfo @jillosopher Ask your doc or his staff for help? #gyncsm |
| Debra Hallisey @advocatemomdad Love this idea! |
| Christina Lizaso @btrfly12 T5: As an introvert, I think I could definitely handle a Zoom meeting better than in-person. Nice that the options are increasing. #gyncsm |
| Georgia @_GeorgiaHurst RT @advocatemomdad: Emotional support should not end after treatments end. You are changed and need to figure out who you are NOW. #gyncsm |
| Tobey @BRCAinfo @advocatemomdad Yes! This! #gyncsm |
| Cancer Hope Network @CancerHopeNet You know which option we **want** to choose. ;) Seriously, it takes a village of support options to provide emotional support when, where, and in the way that's best for each individual. #gyncsm |
| Melissa Cole @ColeFACHE @btrfly12 #gyncsm Christina, so true! The week I was dx, I had a lung biopsy, port placement and started chemo. I had no time to process. No time for the first year. 🚀 |
| Tobey @BRCAinfo RT @advocatemomdad: Emotional support should not end after treatments end. You are changed and need to figure out who you are NOW. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T5: T5: Important to remember support can come in many shapes and forms. Maybe a traditional support group isn't for you, but volunteering at an animal shelter fills your needs. #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm - |
| Cancer Hope Network @CancerHopeNet RT @advocatemomdad: Emotional support should not end after treatments end. You are changed and need to figure out who you are NOW. #gyncsm |
| Tobey @BRCAinfo RT @womenofteal: @jillosopher Yup, Folks expect us to get over it. Not so easy. We change physically and have so many teal sisters we meet along the way pass away- it is difficult. #gyncsm |
| Debra Hallisey @advocatemomdad RT @ColeFACHE: @btrfly12 #gyncsm Christina, so true! The week I was dx, I had a lung biopsy, port placement and started chemo. I had no time to process. No time for the first year. 🚀 |
| Dee Sparacio @womenofteal RT @btrfly12: T5: T5: As an introvert, I think I could definitely handle a Zoom meeting better than in-person. Nice that the options are increasing. #gyncsm |
 | Sevtap Savas, PhD @savaslab RT @btrfly12: T4: T4: I've heard finding counselors with cancer patient experience can be a bit hard. And then it still needs to be a good fit even if they do have that experience. People tend to want you to get over things fast. That shouldn't include your therapist... #gyncsm |
| Elixir Fund @elixirfund @LAMcAlarnenMD @womenofteal I will be co-facilitating a session of Cancer Thriving & Surviving which is a type of support group. We discuss specific topics. We start next week, it runs for six weeks and it is virtual. #gyncsm |
| Martina Murphy, MD @DrMMurphy RT @advocatemomdad: Emotional support should not end after treatments end. You are changed and need to figure out who you are NOW. #gyncsm |
| Dee Sparacio @womenofteal RT @CancerHopeNet: You know which option we **want** to choose. ;) Seriously, it takes a village of support options to provide emotional support when, where, and in the way that's best for each individual. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T6: How do you think disparities in care and access to care impact emotional support needs following a cancer-related diagnosis? #gyncsm |
| Dee Sparacio @womenofteal T5 My needs changed as my cancer experience changed – one-on-one first , then group , then after losing 4 friends in 2 months a therapist helped. Now back to zoom groups. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @elixirfund: @LAMcAlarnenMD @womenofteal I will be co-facilitating a session of Cancer Thriving & Surviving which is a type of support group. We discuss specific topics. We start next week, it runs for six weeks and it is virtual. #gyncsm |
| Debra Hallisey @advocatemomdad RT @elixirfund: @LAMcAlarnenMD @womenofteal I will be co-facilitating a session of Cancer Thriving & Surviving which is a type of support group. We discuss specific topics. We start next week, it runs for six weeks and it is virtual. #gyncsm |
| Jillosopher, BSN, RN @jillosopher @BRCAinfo I plan on it. (And they did refer me to a psychologist during my first year, but she was a resident.) But I only have one more visit before I am discharged from gynonc because I'm 5 years out. #gyncsm |
| Dee Sparacio @womenofteal RT @elixirfund: @LAMcAlarnenMD @womenofteal I will be co-facilitating a session of Cancer Thriving & Surviving which is a type of support group. We discuss specific topics. We start next week, it runs for six weeks and it is virtual. #gyncsm |
| Elixir Fund @elixirfund #gyncsm https://t.co/9KbtA1WBfn |
| Dee Sparacio @womenofteal RT @elixirfund: #gyncsm https://t.co/9KbtA1WBfn |
 | Thales P. Batista, MD, PhD @BatistaTP RT @IJGConline: What are your thoughts on #HIPEC for #OvarianCancer? Is it ready for prime time ? 🧐 Read commentary 👇 🔗 https://t.co/nIVYAAdy9E @IGCSociety @ESGO_society @IJGCfellows @pedroramirezMD @TeamOvary_MSK @zivanovicmd @BatistaTP #GynCancer #Surgery #gyncsm @agz_eriksson |
| Sarah Cassidy @CassidyFish2 RT @CancerHopeNet: You know which option we **want** to choose. ;) Seriously, it takes a village of support options to provide emotional support when, where, and in the way that's best for each individual. #gyncsm |
| Christina Lizaso @btrfly12 T6: I'm wondering what studies have been done on the relationship between physical needs and emotional needs. Seems like if your physical needs are not being met, your emotional distress would increase. #gyncsm |
| Tobey @BRCAinfo RT @elixirfund: @LAMcAlarnenMD @womenofteal I will be co-facilitating a session of Cancer Thriving & Surviving which is a type of support group. We discuss specific topics. We start next week, it runs for six weeks and it is virtual. #gyncsm |
| Tobey @BRCAinfo RT @elixirfund: #gyncsm https://t.co/9KbtA1WBfn |
| Georgia @_GeorgiaHurst @gyncsm T6: #gyncsm Oy vey, how much time do we have left? |
| Dee Sparacio @womenofteal T6 Before covid many in person support groups were not offered at convenient places or times. And many locations only have cancer support group - not those focusing on Gyn cancers #gyncsm |
| Debra Hallisey @advocatemomdad There is no one size fits all. This is why it is so important to have multiple choices for emotional support. We need a healthcare system that can point you to the resource options. Including different types of technology |
| Sarah Temkin @temkins RT @btrfly12: T6: T6: I'm wondering what studies have been done on the relationship between physical needs and emotional needs. Seems like if your physical needs are not being met, your emotional distress would increase. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T6: T6: I'm wondering what studies have been done on the relationship between physical needs and emotional needs. Seems like if your physical needs are not being met, your emotional distress would increase. #gyncsm |
| Sarah Temkin @temkins RT @gyncsm: T6: T6: How do you think disparities in care and access to care impact emotional support needs following a cancer-related diagnosis? #gyncsm |
| Christina Lizaso @btrfly12 RT @CassidyFish2: @gyncsm T4. Support at different stages - early dx, active treatment, survivorship - matters. Long-term survivors like @womenofteal provide such comfort to women facing challenges when "normal life" is actually "new normal." #gyncsm |
| Dee Sparacio @womenofteal #gyncsm |
| Melissa Cole @ColeFACHE @gyncsm #gyncsm disparities in care can make it difficult to get that initial diagnosis!! It was a challenge for me and I have access and knowledge. #SystemicRacism is prevalent in this area. Advocacy & awareness a needed. |
| Dee Sparacio @womenofteal RT @ColeFACHE: @gyncsm #gyncsm disparities in care can make it difficult to get that initial diagnosis!! It was a challenge for me and I have access and knowledge. #SystemicRacism is prevalent in this area. Advocacy & awareness a needed. |
| GYN Cancer | #GYNCSM @gyncsm T7: What resources, organizations, groups, and/or people have offered you the best emotional support? What resources do you recommend for those looking for emotional support? #gyncsm |
| Christina Lizaso @btrfly12 RT @ColeFACHE: @gyncsm #gyncsm disparities in care can make it difficult to get that initial diagnosis!! It was a challenge for me and I have access and knowledge. #SystemicRacism is prevalent in this area. Advocacy & awareness a needed. |
| Dee Sparacio @womenofteal RT @gyncsm: T7: T7: What resources, organizations, groups, and/or people have offered you the best emotional support? What resources do you recommend for those looking for emotional support? #gyncsm |
| Jillosopher, BSN, RN @jillosopher T6: We know Black women's physical pain tends to be dismissed more than white women's, so I can imagine their emotional pain is, too #gyncsm |
| Christina Lizaso @btrfly12 T7: Organizations with oncology social workers you can talk to on the phone include: @CancerCare Hopeline 800-813-HOPE (4673) and for #ovariancancer @ocrahope 212-268-1002 #gyncsm |
| Melissa Cole @ColeFACHE @gyncsm Let alone those who are transgender 🏳️⚧️ #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: T7: Organizations with oncology social workers you can talk to on the phone include: T7: Organizations with oncology social workers you can talk to on the phone include: @CancerCare Hopeline 800-813-HOPE (4673) and for #ovariancancer @ocrahope 212-268-1002 #gyncsm |
| Christina Lizaso @btrfly12 T7: #gyncsm @ocrahope has online support groups https://t.co/QQcgjHx0NR @stepsthrough @ClearityFnd has a 6 month program of free professional counseling in tandem with education, referrals and other resources for any woman facing ovarian cancer, her family and active caregivers. |
| Christina Lizaso @btrfly12 T7: #gyncsm Cancer peer matching via @imemanangels @cancerhopenet @ocrahope @afreshchapter 's mission is to help people make sense of the complex emotions of cancer and give them the tools, support, and community to thrive – even in the midst of challenging circumstances. |
| Cancer Hope Network @CancerHopeNet T7 - Our trained #survivor and #caregiver volunteers provide free/confidential/convenient peer support to patients and loved ones. #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @btrfly12: T7: Organizations with oncology social workers you can talk to on the phone include: T7: Organizations with oncology social workers you can talk to on the phone include: @CancerCare Hopeline 800-813-HOPE (4673) and for #ovariancancer @ocrahope 212-268-1002 #gyncsm |
| Debra Hallisey @advocatemomdad #SystemicRacisim and the health disparities it causes runs the spectrum of your #gyncsm journey from diagnosis to emotional support. |
| Christina Lizaso @btrfly12 T7: #gyncsm Tips for care via @oncosocialwork https://t.co/Hd3t7ALGxA @CancerSupportHQ has a live webchat and many other resources https://t.co/0YGFwMSmGZ |
| Debra Hallisey @advocatemomdad RT @jillosopher: T6: T6: We know Black women's physical pain tends to be dismissed more than white women's, so I can imagine their emotional pain is, too #gyncsm |
| Dee Sparacio @womenofteal @gyncsm T7 @SHAREing has a great Let’s Talk about It :Ovarian Cancer monthly online group. @CancerHopeNet one-on one @ClearityFnd I also like @teaminspire @smart_patients and recently @advovarianca_hu #gyncsm |
| Christina Lizaso @btrfly12 RT @advocatemomdad: #SystemicRacisim and the health disparities it causes runs the spectrum of your #gyncsm journey from diagnosis to emotional support. |
| Debra Hallisey @advocatemomdad RT @btrfly12: T7: Organizations with oncology social workers you can talk to on the phone include: T7: Organizations with oncology social workers you can talk to on the phone include: @CancerCare Hopeline 800-813-HOPE (4673) and for #ovariancancer @ocrahope 212-268-1002 #gyncsm |
| Christina Lizaso @btrfly12 RT @CancerHopeNet: T7 - Our trained #survivor and #caregiver volunteers provide free/confidential/convenient peer support to patients and loved ones. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T7: T7: #gyncsm Cancer peer matching via @imemanangels @cancerhopenet @ocrahope @afreshchapter 's mission is to help people make sense of the complex emotions of cancer and give them the tools, support, and community to thrive – even in the midst of challenging circumstances. |
| Cancer Hope Network @CancerHopeNet RT @btrfly12: T7: T7: #gyncsm Cancer peer matching via @imemanangels @cancerhopenet @ocrahope @afreshchapter 's mission is to help people make sense of the complex emotions of cancer and give them the tools, support, and community to thrive – even in the midst of challenging circumstances. |
| Debra Hallisey @advocatemomdad RT @btrfly12: T7: T7: #gyncsm @ocrahope has online support groups https://t.co/QQcgjHx0NR @stepsthrough @ClearityFnd has a 6 month program of free professional counseling in tandem with education, referrals and other resources for any woman facing ovarian cancer, her family and active caregivers. |
| Cancer Hope Network @CancerHopeNet RT @btrfly12: T7: T7: #gyncsm @ocrahope has online support groups https://t.co/QQcgjHx0NR @stepsthrough @ClearityFnd has a 6 month program of free professional counseling in tandem with education, referrals and other resources for any woman facing ovarian cancer, her family and active caregivers. |
| Dee Sparacio @womenofteal RT @btrfly12: T7: T7: #gyncsm @ocrahope has online support groups https://t.co/QQcgjHx0NR @stepsthrough @ClearityFnd has a 6 month program of free professional counseling in tandem with education, referrals and other resources for any woman facing ovarian cancer, her family and active caregivers. |
| Debra Hallisey @advocatemomdad RT @btrfly12: T7: T7: #gyncsm Cancer peer matching via @imemanangels @cancerhopenet @ocrahope @afreshchapter 's mission is to help people make sense of the complex emotions of cancer and give them the tools, support, and community to thrive – even in the midst of challenging circumstances. |
| Dee Sparacio @womenofteal RT @btrfly12: T7: Organizations with oncology social workers you can talk to on the phone include: T7: Organizations with oncology social workers you can talk to on the phone include: @CancerCare Hopeline 800-813-HOPE (4673) and for #ovariancancer @ocrahope 212-268-1002 #gyncsm |
| Debra Hallisey @advocatemomdad RT @CancerHopeNet: T7 - Our trained #survivor and #caregiver volunteers provide free/confidential/convenient peer support to patients and loved ones. #gyncsm |
| Christina Lizaso @btrfly12 T7: #gyncsm Cancer peer matching via @ImermanAngels @cancerhopenet @ocrahope @afreshchapter 's mission is to help people make sense of the complex emotions of cancer and give them the tools, support, and community to thrive – even in the midst of challenging circumstances. |
| Dee Sparacio @womenofteal RT @jillosopher: T6: T6: We know Black women's physical pain tends to be dismissed more than white women's, so I can imagine their emotional pain is, too #gyncsm |
| Georgia @_GeorgiaHurst RT @advocatemomdad: #SystemicRacisim and the health disparities it causes runs the spectrum of your #gyncsm journey from diagnosis to emotional support. |
| Dee Sparacio @womenofteal RT @CancerHopeNet: T7 - Our trained #survivor and #caregiver volunteers provide free/confidential/convenient peer support to patients and loved ones. #gyncsm |
| Debra Hallisey @advocatemomdad RT @btrfly12: T7: T7: #gyncsm Tips for care via @oncosocialwork https://t.co/Hd3t7ALGxA @CancerSupportHQ has a live webchat and many other resources https://t.co/0YGFwMSmGZ |
| Dee Sparacio @womenofteal RT @advocatemomdad: #SystemicRacisim and the health disparities it causes runs the spectrum of your #gyncsm journey from diagnosis to emotional support. |
| Sarah Temkin @temkins RT @btrfly12: T7: T7: #gyncsm Cancer peer matching via @ImermanAngels @cancerhopenet @ocrahope @afreshchapter 's mission is to help people make sense of the complex emotions of cancer and give them the tools, support, and community to thrive – even in the midst of challenging circumstances. |
| Melissa Cole @ColeFACHE 💯 for #OvarianCancer @stepsthrough https://t.co/N3fV62ITW2 via @ClearityFnd The. Best. Ever!! #gyncsm 🙌❤️🥰 Live saving on so many levels!! |
| Christina Lizaso @btrfly12 RT @womenofteal: @gyncsm T7 @SHAREing has a great Let’s Talk about It :Ovarian Cancer monthly online group. @CancerHopeNet one-on one @ClearityFnd I also like @teaminspire @smart_patients and recently @advovarianca_hu #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T7: T7: #gyncsm Tips for care via @oncosocialwork https://t.co/Hd3t7ALGxA @CancerSupportHQ has a live webchat and many other resources https://t.co/0YGFwMSmGZ |
| Dee Sparacio @womenofteal RT @btrfly12: T7: T7: #gyncsm Cancer peer matching via @ImermanAngels @cancerhopenet @ocrahope @afreshchapter 's mission is to help people make sense of the complex emotions of cancer and give them the tools, support, and community to thrive – even in the midst of challenging circumstances. |
| Debra Hallisey @advocatemomdad RT @womenofteal: @gyncsm T7 @SHAREing has a great Let’s Talk about It :Ovarian Cancer monthly online group. @CancerHopeNet one-on one @ClearityFnd I also like @teaminspire @smart_patients and recently @advovarianca_hu #gyncsm |
| Debra Hallisey @advocatemomdad RT @btrfly12: T7: T7: #gyncsm Cancer peer matching via @ImermanAngels @cancerhopenet @ocrahope @afreshchapter 's mission is to help people make sense of the complex emotions of cancer and give them the tools, support, and community to thrive – even in the midst of challenging circumstances. |
| Cancer Hope Network @CancerHopeNet RT @womenofteal: @gyncsm T7 @SHAREing has a great Let’s Talk about It :Ovarian Cancer monthly online group. @CancerHopeNet one-on one @ClearityFnd I also like @teaminspire @smart_patients and recently @advovarianca_hu #gyncsm |
| Lindsey McAlarnen, MD, FACOG @LAMcAlarnenMD @womenofteal @gyncsm @SHAREing @CancerHopeNet @ClearityFnd @teaminspire @smart_patients @advovarianca_hu This is amazing! Thanks for all the resources for our patients! I’m going to make a sheet for our new patient info packets #gyncsm @SGO_org |
| Dee Sparacio @womenofteal T7 Not sure if already mentioned FORCE Facing our Risk @FacingOurRisk and Cancer Care @CancerCare #gyncsm |
| Christina Lizaso @btrfly12 @ColeFACHE @gyncsm I think SGO or ASCO or another recently came out with some guidelines for cultivating an inclusive practice. Great to see. Also a recent case study was published by a patient. #gyncsm |
| Martina Murphy, MD @DrMMurphy @LAMcAlarnenMD @womenofteal @gyncsm @SHAREing @CancerHopeNet @ClearityFnd @teaminspire @smart_patients @advovarianca_hu @SGO_org Yes! I’m drafting a handout for our clinic now! So many great resources. #gyncsm |
| Melissa Cole @ColeFACHE RT @btrfly12: @ColeFACHE @gyncsm I think SGO or ASCO or another recently came out with some guidelines for cultivating an inclusive practice. Great to see. Also a recent case study was published by a patient. #gyncsm |
| Christina Lizaso @btrfly12 T5: Having so many resources is great. And also overwhelming at first. Be sure to offer resources all along the way and not just in the beginning when processing info is difficult and needs not yet known. #gyncsm :) |
| Georgia @_GeorgiaHurst @advocatemomdad #gyncsm The #healthdisparities amongst minorities are enormous and disconcerting. Minorities often to not get the basic care they need, require and deserve, let alone the emotional support. It's sad and we must do better on this front. #MinorityHealth |
| Dee Sparacio @womenofteal RT @btrfly12: @ColeFACHE @gyncsm I think SGO or ASCO or another recently came out with some guidelines for cultivating an inclusive practice. Great to see. Also a recent case study was published by a patient. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Last topic as we begin to wrap up - Any tips? T8: As patients, advocates, and healthcare professionals, burn-out is a problem that has for many only intensified in recent years. Where do you find emotional support for interacting with the healthcare system? #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T5: T5: Having so many resources is great. And also overwhelming at first. Be sure to offer resources all along the way and not just in the beginning when processing info is difficult and needs not yet known. #gyncsm :) |
| Debra Hallisey @advocatemomdad 100% |
| Dee Sparacio @womenofteal RT @_GeorgiaHurst: @advocatemomdad #gyncsm The #healthdisparities amongst minorities are enormous and disconcerting. Minorities often to not get the basic care they need, require and deserve, let alone the emotional support. It's sad and we must do better on this front. #MinorityHealth |
| Martina Murphy, MD @DrMMurphy @btrfly12 @ColeFACHE @gyncsm https://t.co/t5K4LsedOF This was a very powerful piece. @JCO_ASCO #gyncsm |
| Debra Hallisey @advocatemomdad RT @btrfly12: T5: T5: Having so many resources is great. And also overwhelming at first. Be sure to offer resources all along the way and not just in the beginning when processing info is difficult and needs not yet known. #gyncsm :) |
| Dee Sparacio @womenofteal RT @gyncsm: Last topic as we begin to wrap up - Any tips? T8: As patients, advocates, and healthcare professionals, burn-out is a problem that has for many only intensified in recent years. Where do you find emotional support for interacting with the healthcare system? #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm - |
| Dee Sparacio @womenofteal RT @DrMMurphy: @btrfly12 @ColeFACHE @gyncsm https://t.co/t5K4LsedOF This was a very powerful piece. @JCO_ASCO #gyncsm |
| Christina Lizaso @btrfly12 T8: I think it is important as advocates to give ourselves permission to step back from time to time. And also to give yourself a healthcare/cancer-land break when you can. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Already time to share closing thoughts! We use the last few minutes of the chat to wrap up and share with each other what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for “Today I Learned”. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T8: T8: I think it is important as advocates to give ourselves permission to step back from time to time. And also to give yourself a healthcare/cancer-land break when you can. #gyncsm |
| Martina Murphy, MD @DrMMurphy @LAMcAlarnenMD @womenofteal @gyncsm @SHAREing @CancerHopeNet @ClearityFnd @teaminspire @smart_patients @advovarianca_hu @SGO_org @FPMRS @AmericanBrachy YES. So so needed! #sexualhealth after a cancer diagnosis is very poorly addressed and we’ve got work to do! #gyncsm |
| Christina Lizaso @btrfly12 FYI: Join @SaludAmerica for a webinar Thur, Feb. 10, at 1pmCT on “Addressing Social Needs to Prevent and Reduce Cancer” https://t.co/7yEHfZTdsM #gyncsm |
| Georgia @_GeorgiaHurst @btrfly12 T8: #gyncsm: Limiting interaction -- social media detox is always helpful. |
| Dee Sparacio @womenofteal RT @DrMMurphy: @LAMcAlarnenMD @womenofteal @gyncsm @SHAREing @CancerHopeNet @ClearityFnd @teaminspire @smart_patients @advovarianca_hu @SGO_org @FPMRS @AmericanBrachy YES. So so needed! #sexualhealth after a cancer diagnosis is very poorly addressed and we’ve got work to do! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone who joined along and shared. Save the date for our next #gyncsm chat - Wed, March 9th at 8pmET on “Cervical Cancer Updates and Global Initiatives”. |
| Dee Sparacio @womenofteal RT @btrfly12: FYI: FYI: Join @SaludAmerica for a webinar Thur, Feb. 10, at 1pmCT on “Addressing Social Needs to Prevent and Reduce Cancer” https://t.co/7yEHfZTdsM #gyncsm |
| Sarah Cassidy @CassidyFish2 RT @btrfly12: T8: T8: I think it is important as advocates to give ourselves permission to step back from time to time. And also to give yourself a healthcare/cancer-land break when you can. #gyncsm |
| Dee Sparacio @womenofteal RT @_GeorgiaHurst: @btrfly12 T8: #gyncsm: @btrfly12 T8: #gyncsm: Limiting interaction -- social media detox is always helpful. |
 | Lisa M Guzzardi, RN @LguzzardiM Resources & Support for #OvarianCancer Patients via @ocrahope #gyncsm https://t.co/eKwCTzKFcr |
| Tobey @BRCAinfo @gyncsm TIL healthcare professionals need to reach out to their patients & ask if they need emotional support & patients need to ask their team for help. No shame #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. And reach out anytime for collaboration :) |
| Dee Sparacio @womenofteal T8 Some oncology organizations like @ASCO are addressing provider burn-out and offering support . #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks to everyone who joined along and shared. Save the date for our next #gyncsm chat - Wed, March 9th at 8pmET on “Cervical Cancer Updates and Global Initiatives”. |
| Dee Sparacio @womenofteal RT @LguzzardiM: Resources & Support for #OvarianCancer Patients via @ocrahope #gyncsm https://t.co/eKwCTzKFcr |
| Christina Lizaso @btrfly12 RT @BRCAinfo: @gyncsm TIL healthcare professionals need to reach out to their patients & ask if they need emotional support & patients need to ask their team for help. No shame #gyncsm |
| Christina Lizaso @btrfly12 RT @LguzzardiM: Resources & Support for #OvarianCancer Patients via @ocrahope #gyncsm https://t.co/eKwCTzKFcr |
| Dee Sparacio @womenofteal RT @gyncsm: Already time to share closing thoughts! We use the last few minutes of the chat to wrap up and share with each other what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for “Today I Learned”. #gyncsm |
| Tobey @BRCAinfo RT @gyncsm: Thanks to everyone who joined along and shared. Save the date for our next #gyncsm chat - Wed, March 9th at 8pmET on “Cervical Cancer Updates and Global Initiatives”. |
| Christina Lizaso @btrfly12 #gyncsm - |
| Dee Sparacio @womenofteal Agree 100% |
| Dee Sparacio @womenofteal RT @gyncsm: As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. And reach out anytime for collaboration :) |
| Cancer Hope Network @CancerHopeNet Thanks, everyone! (And especially @btrfly12 and @womenofteal. So grateful for the community of information and support you've built here.) #gyncsm |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Georgia @_GeorgiaHurst Thank you for the great, informative chat! Keep up the great work on #gyncsm and thank you for all you do @womenofteal @btrfly12. Good night, sleep well. xx |
| Jillosopher, BSN, RN @jillosopher Goodnight #gyncsm It was great to join you again. Thanks @womenofteal and @btrfly12 for hosting |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Tobey @BRCAinfo Good night. Be well all. Thank you~ #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Wonderful chat. Wishing wellness and safety for all. Thanks for all you to do advocate for yourself and others. #gyncsm |
| Martina Murphy, MD @DrMMurphy @_GeorgiaHurst @LAMcAlarnenMD @womenofteal @gyncsm @SHAREing @CancerHopeNet @ClearityFnd @teaminspire @smart_patients @advovarianca_hu @SGO_org @FPMRS @AmericanBrachy @DrSharonBober Dr. Bober’s work is incredible & pioneering. Thank you for tagging her here! #gyncsm |
| Dee Sparacio @womenofteal Grateful for my #gyncsm co-moderator - @btrfly12 whose talent at crafting questions that get such great responses amazes me 8+ years later. |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm - |
| Dee Sparacio @womenofteal @_GeorgiaHurst @btrfly12 so glad you could join us. Hope to see you in person again one day soon. #gyncsm |
| Christina Lizaso @btrfly12 @womenofteal Better in text format always :) Love our partnership - and sorry you have to exercise patience so often for me to finish up. Hope to meet in person this summer! #gyncsm |
| Dee Sparacio @womenofteal @jillosopher @btrfly12 Happy you could join us. See you next month. #gyncsm |
| Dee Sparacio @womenofteal @BRCAinfo You are very welcome. Thanks for joining us. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Wonderful chat. Wishing wellness and safety for all. Thanks for all you to do advocate for yourself and others. #gyncsm |
| Dee Sparacio @womenofteal RT @DrMMurphy: @_GeorgiaHurst @LAMcAlarnenMD @womenofteal @gyncsm @SHAREing @CancerHopeNet @ClearityFnd @teaminspire @smart_patients @advovarianca_hu @SGO_org @FPMRS @AmericanBrachy @DrSharonBober Dr. Bober’s work is incredible & pioneering. Thank you for tagging her here! #gyncsm |
| Melissa Cole @ColeFACHE RT @womenofteal: @gyncsm T7 @SHAREing has a great Let’s Talk about It :Ovarian Cancer monthly online group. @CancerHopeNet one-on one @ClearityFnd I also like @teaminspire @smart_patients and recently @advovarianca_hu #gyncsm |
 | NCI Cancer Stats @NCICancerStats The 5-yr survival rate for #OvarianCancer is 49%, meaning 49% of people diagnosed with the disease will not have died from it 5 years after diagnosis (excluding the risk of dying from other causes). To learn more, visit our Cancer Stat Facts sheet: https://t.co/HWrp6HOzTG #GynCSM https://t.co/V0mi62juaX |
| Sarah Cassidy @CassidyFish2 @btrfly12 @womenofteal So grateful for you both! Words for the win, @btrfly12! Thanks for wielding them so powerfully on behalf of others. #gyncsm |
| Christina Lizaso @btrfly12 TIL: Today I was reminded that asking for help is hard, but when you find others who "get it" burdens and tensions release. Sometimes you have to take the risk and reach out. Also loved seeing eager healthcare folks who embrace whole-person care on #gyncsm |
| Dee Sparacio @womenofteal Stay well Teal Sisters, healthcare providers and caregivers #gyncsm |
| Christina Lizaso @btrfly12 RT @NCICancerStats: The 5-yr survival rate for #OvarianCancer is 49%, meaning 49% of people diagnosed with the disease will not have died from it 5 years after diagnosis (excluding the risk of dying from other causes). To learn more, visit our Cancer Stat Facts sheet: https://t.co/HWrp6HOzTG #GynCSM https://t.co/V0mi62juaX |
| Dee Sparacio @womenofteal RT @CassidyFish2: @btrfly12 @womenofteal So grateful for you both! Words for the win, @btrfly12! Thanks for wielding them so powerfully on behalf of others. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: TIL: TIL: Today I was reminded that asking for help is hard, but when you find others who "get it" burdens and tensions release. Sometimes you have to take the risk and reach out. Also loved seeing eager healthcare folks who embrace whole-person care on #gyncsm |
| Lisa M Guzzardi, RN @LguzzardiM RT @NCICancerStats: The 5-yr survival rate for #OvarianCancer is 49%, meaning 49% of people diagnosed with the disease will not have died from it 5 years after diagnosis (excluding the risk of dying from other causes). To learn more, visit our Cancer Stat Facts sheet: https://t.co/HWrp6HOzTG #GynCSM https://t.co/V0mi62juaX |
 | Pat Adams @PathologyPat RT @LguzzardiM: Resources & Support for #OvarianCancer Patients via @ocrahope #gyncsm https://t.co/eKwCTzKFcr |
 | The US Oncology Network @TheUSONetwork RT @TargetedOnc: Bradley J. Monk, MD, FACOG, FACS, of @TheUSONetwork, discusses the use of immune checkpoint inhibitors to treat cervical cancer. #GynCSM https://t.co/pkET9ZZjbf |
#GynCSM content from Twitter.