#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
– ().
See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community for those impacted by a gynecologic cancer-related diagnosis, including survivors, previvors, caregivers, advocates, and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our #gyncsm co-moderators are @womenofteal @btrfly12 Our health care advisors are @ShannonWestin and our newest advisor Dr. Nita Lee @NitaKarnikLee from @uchicago_obgyn @UCCancerCenter We start out with brief intro’s - Please take a moment to introduce yourself. |
 | Christina Lizaso @btrfly12 RT @gyncsm: Our #gyncsm co-moderators are @womenofteal @btrfly12 Our health care advisors are @ShannonWestin and our newest advisor Dr. Ni… |
| Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer care. I’ll be moderating as @gyncsm today. #gyncsm |
 | Dee Sparacio @womenofteal Dee here! Stage 3B ovarian cancer survivor and research advocate, blogger, co-Author of “100 Questions and Answers about Ovarian cancer” & co-moderator #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to “listen only” during the chat, we'd love for you to post "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
 | Tobey @BRCAinfo @gyncsm @womenofteal @btrfly12 @ShannonWestin @NitaKarnikLee @uchicago_obgyn @UCCancerCenter Hi everyone. I’m Tobey. I currently serve as a consumer advocate on an immunological cancer vaccine trial. Im excited about the advances in immunotherapy but I purposely will not be responding to some of the questions tonight so no one misinterprets my words. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their experiences and perspectives. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their exp… |
| Dee Sparacio @womenofteal @womenofteal: #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
| GYN Cancer | #GYNCSM @gyncsm Are you new to chats? Follow hashtag #gyncsm under Explore - Latest and include the hashtag in every post during the next hour to engage with others about this topic. You may need to refresh to see new posts as they are added. |
| Dee Sparacio @womenofteal @BRCAinfo @gyncsm @btrfly12 @ShannonWestin @NitaKarnikLee @uchicago_obgyn @UCCancerCenter Glad to have you will us tonight . #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Are you new to chats? Follow hashtag #gyncsm under Explore - Latest and include the hashtag in every post during the next hour… |
| GYN Cancer | #GYNCSM @gyncsm We welcome all those joining in as well as those here to “listen in”. We'd love you to post #gyncsm so we know you are here and you can always tweet, DM or email us with questions/comments after the chat is over if you like. See our blog for info: https://t.co/oJ3xer6G8t |
| Tobey @BRCAinfo @womenofteal @gyncsm @btrfly12 @ShannonWestin @NitaKarnikLee @uchicago_obgyn @UCCancerCenter Always happy to support you. #gyncsm |
| Dee Sparacio @womenofteal Remember - this is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight on #gyncsm we’ll be discussing Immunotherapy Treatment. Since our last chat on immunotherapy in 2018, we have seen the field change. You can find the 6 Topic Questions we’ll cover on today’s chat on our #gyncsm blog: https://t.co/6I6jDqbihG |
| Dee Sparacio @womenofteal RT @gyncsm: Tonight on #gyncsm we’ll be discussing Immunotherapy Treatment. Since our last chat on immunotherapy in 2018, we have seen the… |
| Christina Lizaso @btrfly12 RT @gyncsm: Tonight on #gyncsm we’ll be discussing Immunotherapy Treatment. Since our last chat on immunotherapy in 2018, we have seen the… |
| Dee Sparacio @womenofteal Thank you to all who have posted valuable information to our community during the past month using the #gyncsm hashtag and helped to promote tonight's chat. |
| Tobey @BRCAinfo @gyncsm WOW- has it ever!!! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. #gyncsm |
| Dee Sparacio @womenofteal Some acronyms we may use tonight IT - Immunotherapy ADC’s- Antibody drug conjugates CAR-T - chimeric antigen receptor HPV - human papillomavirus PDL 1 - Programmed Cell Death Ligand 1 ICI - Immune Checkpoint Inhibitors TILS Tumor-infiltrating lymphocytes #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T1: #gyncsm What is immunotherapy? How is it different from other gyn cancer treatments (surgery, chemo, radiation)? How many types of immunotherapy are there? |
| Tobey @BRCAinfo @gyncsm T1: Immunotherapy is TARGETED treatment that uses certain parts of a person’s immune system to fight disease. It stimulates our immune system so it works harder to find and attack the disease. |
| Tobey @BRCAinfo @gyncsm Immunotherapy is TARGETED treatment that uses certain parts of a person’s immune system to fight disease. It stimulates our immune system so it works harder to find and attack the disease. #gyncsm |
 | Katie Kurnit @katiekurnit Hi everyone! Sorry to be late. I am Katherine Kurnit, a #gynonc at @UCCancerCenter in Chicago. I have a special interest in new treatments such as immunotherapy and in #ClinicalTrials . Excited to be here! #gyncsm |
| Dee Sparacio @womenofteal T1 This graphic from the @AACR Cancer Progress Report shows the different types of immunotherapies #gyncsm https://t.co/IPNkhTqkwA |
| GYN Cancer | #GYNCSM @gyncsm Tonight We welcome Dr Katie Kurnit @katiekurnit a Gynecologic Oncologist at the University of Chicago @UCCancerCenter So glad you could join for a bit. #gyncsm |
 | IamCervivor @IamCervivor Hi All! We’re listening in tonight! #GYNCSM https://t.co/rdfZa0Gpdg |
| Dee Sparacio @womenofteal @katiekurnit @UCCancerCenter We are so happy to have you join us! #gyncsm |
| @MaryMit61548361 @katiekurnit @UCCancerCenter ░N░U░D░E░S░ ░I░N░ ░B░I░O░ | |
| Christina Lizaso @btrfly12 T1: It was surprising to learn just how many different types of immunotherapies there are - that it isn't just one thing but a collection of tools based on targeted strategies. #gyncsm |
| Dee Sparacio @womenofteal via @AmericanCancer Immunotherapy is treatment that uses a person's own immune system to fight cancer. Immunotherapy can boost or change how the immune system works so it can find and attack cancer cells. #gyncsm |
| Christina Lizaso @btrfly12 T1: It is also amazing how fast the immunotherapy science is moving - because science is mostly a slow go. #gyncsm |
| Dee Sparacio @womenofteal @IamCervivor Thanks for taking the time to join us again tonight. #gyncsm |
| Katie Kurnit @katiekurnit T1: Immunotherapy is a cancer treatment that works with the person’s immune system to fight cancer. This makes it different from chemotherapy which focuses more on killing cancer cells directly. (1/2) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2: #gyncsm Which gyn cancers have immunotherapy treatments approved by the FDA? Are there immunotherapies in trials now that show promise? |
| Katie Kurnit @katiekurnit T1: Both immunotherapy and chemo can travel throughout the body, rather than focusing on a specific area of the body like radiation or surgery. And there are lots of different immunotherapy treatments emerging now! (2/2) #gyncsm |
| @MichelleRo61486 @btrfly12 ░L░I░N░K░ ░I░N░ ░B░I░O░ | |
| Dee Sparacio @womenofteal T2 Excellent review of immunotherapies in this @ASCO publication https://t.co/tz4l6YTVg9 Immunotherapy in Gynecologic Cancers: What We Know Now and Where We Are Headed #gyncsm |
| @_Carolyne_zu_po @katiekurnit Let's spread hope and healing to every corner of our bodies. Together, we can fight and win! #strongertogether 💪🙌 | |
| Katie Kurnit @katiekurnit T2: Currently, both #cervicalcancer and endometrial cancer have tumor type-specific @FDA approvals. Each of these indications requires some molecular testing on the tumor to help determine which regimen would be best. (1/2) #gyncsm |
| Christina Lizaso @btrfly12 T2: there are immunotherapies emerging in cervical, ovarian and uterine. much more is available since immunotherapy first started being used in cancer. #gyncsm |
| Dee Sparacio @womenofteal T2 Cervical Cancer immunotherapies include vaccines like Gardasil-9® for HPV , ADC like Tisotumab vedotin and ICI Pembrolizumab @AmericanCancer https://t.co/llUaL9AjP0 #gyncsm |
| Katie Kurnit @katiekurnit This is a great review! Here's another excellent one specific to #ovariancancer #gyncsm https://t.co/bIYsiGvJFp https://t.co/e92YnPI6tg |
| Dee Sparacio @womenofteal @katiekurnit Lots of great information in this article. #gyncsm |
| @cgegaris1 @gyncsm #gyncsm | |
| Katie Kurnit @katiekurnit T2: There are also broader approvals that are based on a molecular test result, such as mismatch repair deficiency or high tumor mutational burden, that have immunotherapy approvals for any type of #Cancer. (2/2) #gyncsm |
 | Nita Lee @NitaKarnikLee @womenofteal @AmericanCancer Yes ! Immune response very critical given #cervicalcancer and other #hpvcancers are viral mediated! Would just clarify the #hpv vaccine is available for primary prevention but not tx but others are for therapy of recurrent disease currently |
| GYN Cancer | #GYNCSM @gyncsm T3: How is it determined if immunotherapy is an appropriate treatment option for an individual? #gyncsm |
 | jenna @molbiomarie @gyncsm #gyncsm |
| Nita Lee @NitaKarnikLee #gyncsm hi everyone! joining only briefly before a flight! I’m a Gyn onc @UCCancerCenter |
| Tobey @BRCAinfo @gyncsm Your general health is considered. What kind of cancer; size of tumor; stage. Have you had prior treatment? #gyncsm |
| Christina Lizaso @btrfly12 T2: the Society for Gynecologic Oncology @SGO_org is hosting their meeting March 16-18. So stay tuned over the next few days to #SGOMtg for updates on immunotherapy and all things gyn cancer related. We'll do a #gyncsm research update chat this summer. |
| IamCervivor @IamCervivor RT @btrfly12: T2: the Society for Gynecologic Oncology @SGO_org is hosting their meeting March 16-18. So stay tuned over the next few days… |
| Dee Sparacio @womenofteal T2 Approved Ovarian cancer treatments include : ADC s Mirvetuximab soravtansine , checkpoint inhibitors - Dostarlimab, Pembrolizumab via @CancerResearch https://t.co/c3uFA03F8n #gyncsm |
| Dee Sparacio @womenofteal @NitaKarnikLee @UCCancerCenter Hi Nita! Safe Travels .#gyncsm |
| Katie Kurnit @katiekurnit T3: The individual and doctor would discuss the pros/cons of both the immunotherapy and the other treatment choices. Certain medical conditions, like some autoimmune diseases, may make it less safe to use immunotherapy. #gyncsm |
| Christina Lizaso @btrfly12 T3: As has been mentioned, biomarker testing on the tumor can identify who might benefit from immunotherapy and individual factors are also considered. Immunotherapy isn't a good fit for all but should be considered. #gyncsm |
| Katie Kurnit @katiekurnit T3: Even if no immunotherapy is approved, remember that many other immunotherapies are being tested in #clinicaltrials for many different types of #Cancer ! #gyncsm |
| Nita Lee @NitaKarnikLee @gyncsm T3: currently FDA approval in #gyncsm is in endometrial and cervical depends on specific molecular testing; testing can also help clarify immunotherapy alone vs with other drugs ex. Pembro/lenvima vs Pembro only in #endometrialcancer recurrence |
| GYN Cancer | #GYNCSM @gyncsm T4: #gyncsm What is the immunotherapy treatment experience like? What are the common side effects with immunotherapy and how do they differ from other gyn cancer treatments? |
| Dee Sparacio @womenofteal T4 @cancerdotnet has a list of overall side effects for immunotherapies https://t.co/VFUSL0H9uO #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T4 @cancerdotnet has a list of overall side effects for immunotherapies https://t.co/VFUSL0H9uO #gyncsm |
| Katie Kurnit @katiekurnit T4: In general, I've found that many people feel well while receiving treatment with an ICI, and may end up staying on this treatment for several yrs if it works well. Side effects are different than chemo #gyncsm |
| Dee Sparacio @womenofteal RT @katiekurnit: T4: In general, I've found that many people feel well while receiving treatment with an ICI, and may end up staying on thi… |
| Christina Lizaso @btrfly12 T4: Like any cancer treatment, side effects vary widely between individuals. It important to stay in communication with your healthcare team about side effects and there are many options to try to mitigate various side effects. #gyncsm |
| Katie Kurnit @katiekurnit T4: Side effects are different from traditional chemo, and are often due to inflammation by the immune system; so-called “-itis” es. Ex colitis (inflammation of the colon), thyroiditis (of the thyroid), hepatitis (liver), etc. #gyncsm |
| Dee Sparacio @womenofteal @katiekurnit T4 One different one that I heard of was blurry vision on Mirvetuximab soravtansine. Certain eye drops were prescribed for use during the treatment. But it was not a long term effect. #gyncsm |
| Christina Lizaso @btrfly12 RT @katiekurnit: T4: Side effects are different from traditional chemo, and are often due to inflammation by the immune system; so-called “… |
| GYN Cancer | #GYNCSM @gyncsm T5/6: #gyncsm What advice would you give to others considering an immunotherapy treatment or trial? What are some resources for learning more about immunotherapy in treating gyn cancers? |
| GYN Cancer | #GYNCSM @gyncsm T5/6: For #ovariancancer, tomorrow Thur 3/14 at 12:30 PM CST (1:30 PM EST) @ovarcome will have Dr. Kunle Odunsi talking About The Greatest Advances in Immunotherapy in Ovarian Cancer on their YouTube https://t.co/XYKXuJfeHD It will also be available to view later #gyncsm |
| Katie Kurnit @katiekurnit @womenofteal yes! being aware of side effects seen in #clinicaltrials of these newer drugs allows us to be prepared and have a plan in place to treat symptoms when they arise #gyncsm |
| Dee Sparacio @womenofteal #gyncsm https://t.co/mx42Jubvwy |
| Tobey @BRCAinfo @gyncsm https://t.co/SLSmnL1i8R #gyncsm |
| Dee Sparacio @womenofteal T5/6 One good resource is Society for Immunotherapy of Cancer (@sitcancer ) clinical practice guideline on immunotherapy for the treatment of gynecologic cancer https://t.co/oO62oirmw8 #gyncsm |
| Christina Lizaso @btrfly12 @BRCAinfo @gyncsm great resource - thanks for sharing #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We use the last few minutes of the chat to wrap up and share with each other what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for “Today I Learned”. #gyncsm |
| Katie Kurnit @katiekurnit T5/6: I am really excited about the future of immunotherapy in #gynonc ! The way we learn more is through #clinicalresearch and #clinicaltrials. Lots of exciting new types of immunotherapies are coming down the pipeline #gyncsm |
| Dee Sparacio @womenofteal T5/6 This video has good information about immunotherapies https://t.co/ydRMTCU2tS #gyncsm |
| Dee Sparacio @womenofteal @gyncsm TIL there are many more types of immunotherapies than I had originally thought. There is a need to have these therapies available globally. #gyncsm |
| Tobey @BRCAinfo Good night & thank you for all you do 🙏 #gyncsm Stay well everyone 🌹 |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone who joined along. We appreciate the resources you shared @katiekurnit @NitaKarnikLee @BRCAinfo Note: we are chatting quarterly this year. See you June 12, 2024 at 8PM ET as we discuss the latest research news from the #ASCO24 and #SGOmtg #gyncsm |
| Dee Sparacio @womenofteal Attending the #SGOmtg? Please share news with our community by adding #gyncsm to your post. Thanks! |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm Remember you can continue our discussion about immunotherapy treatments on @smart_patients by joining Smart Patients at https://t.co/VThnlWkPSX |
| Dee Sparacio @womenofteal Remember to check https://t.co/JZIoB1usYm a transcript of the chat and resources. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to post things of interest with hashtag #gyncsm to keep the conversation going between chats. And feel free to keep answering tonight's topic questions if you are just joining or reading later :) Just include hashtag #gyncsm in your response. |
| Katie Kurnit @katiekurnit TIL: Dr. Odunsi of @UCCancerCenter is talking about ovarian cancer immunotherapy tomorrow! He is one of the world's leading experts, excited to hear what he will discuss #gyncsm https://t.co/Aul2VrtM1J |
| GYN Cancer | #GYNCSM @gyncsm We'll post the transcript from tonight's chat and then a blog post with a summary. You can look for that in the #gyncsm feed or pinned to our profile. Thanks @womenofteal for all your work on the blog. We also have our 2024 chat dates posted there on the side bar. |
| Dee Sparacio @womenofteal RT @gyncsm: As always, remember to post things of interest with hashtag #gyncsm to keep the conversation going between chats. And feel fre… |
| Dee Sparacio @womenofteal Thanks @btrfly12 for guiding tonight's discussion and for crafting such great questions. #gyncsm |
| Dee Sparacio @womenofteal @katiekurnit Thank you for taking the time from your busy work and family schedule to join us tonight. Appreciate it. #gyncsm |
#GynCSM content from Twitter.