#GynCSM Transcript

Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.

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GYN Cancer | #GYNCSM @gyncsm
Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
Dee Sparacio @womenofteal
RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
Inspire @teaminspire
RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
Shannon Westin @ShannonWestin
Hi friends! I am a Gyn Onc at @MDAndersonNews - happy to be here with you all to discuss #COVID19 and #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
Sarah Temkin @temkins
RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our men…
Inspire @teaminspire
@gyncsm Hello to the #gyncsm community, John Novack here from Inspire.
GYN Cancer | #GYNCSM @gyncsm
We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm
Dee Sparacio @womenofteal
@ShannonWestin @MDAndersonNews Hi Shannon! Hope you and your family are well. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our men…
KD Richardson @KDRichardson924
@gyncsm @AdrienneEcana #gyncsm Good Evening! Kimberly from Chicago. Looking forward to this hour of discussion
Annie Ellis @Stigetta
Annie Ellis 15-yr ovca survivor/research advocate. 2 recurrences now 12 yrs NED. I volunteer w/ @ocrahope and @SHAREing. Patient advocate member of @SGO_org COVID-19 Task Force #gyncsm
Shannon Westin @ShannonWestin
RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our men…
GYN Cancer | #GYNCSM @gyncsm
If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here.
DaveisAliveAndKickn @AliveAndKicknDD
RT @ShannonWestin: Let's chat about #COVID-19 - we will have great guests from the @SGO_org task force! Lot's to learn #gyncsm
EcanaAdrienne @AdrienneEcana
@gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm Thank you to our Moderators for creating this space for us
Shannon Westin @ShannonWestin
@KestersonJoshua @SGO_org @amandanfader @BPothuri We've got you covered!! #gyncsm
Dee Sparacio @womenofteal
@teaminspire @gyncsm Hi John Welcome . #gyncsm
Bhavana Pothuri @BPothuri
I am Bhavana Pothuri a #gynonc @NYULangonehealth in #NYC. I am the Vice chair of the Clinical Practice Committee for SGO and am a co-chair of the COVID-19 TF We are excited to tweetchat. Our tweets are not a substitute for your treating physician. #GYNcsm #COVID19 #SGOCOVID19
Dee Sparacio @womenofteal
RT @gyncsm: We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm
Debra Hallisey @advocatemomdad
Hi Deb here from Advocate for Mom and Dad. #gyncsm
Shannon Westin @ShannonWestin
@womenofteal @MDAndersonNews Hi Dee! We are making it! Hope you are doing okay!! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Please continue intro's and welcomes while @womenofteal and I start in w/ the "ground rules" :) and tips! #gyncsm
Dee Sparacio @womenofteal
@KDRichardson924 @gyncsm @AdrienneEcana Hi Kim So happy you are here tonight! #gyncsm
Joshua Kesterson @KestersonJoshua
Josh Kesterson. Gyn Onc @ Penn State Hershey Med Center. Hershey, Pennsylvania. Honored to be member of SGO COVID-19 Task Force and on this Tweet Chat #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are…
Christina Lizaso @btrfly12
Christina Lizaso – passionate re: community engagement and cancer care. I’ll be moderating as @gyncsm today. #gyncsm
Shannon Westin @ShannonWestin
@BPothuri Welcome to #gyncsm Dr. Pothuri!! #gyncsm
Alexa Jett 🦋 @ohhiialexa
Hey #GYNCSM! I’m so sorry that we are all going through trying times right now, but I am glad we are together! I’m Alexa! ❤️ Thyroid cancer survivor, blogger, and #AYACancer advocate. So thrilled that it’s #NAYACAW (National AYA Cancer Awareness Week)!
DaveisAliveAndKickn @AliveAndKicknDD
Dave Dubin, 3x Lynch Syndrome survivor, above average soccer coach #gyncsm
Amanda Nickles Fader, MD @amandanfader
Good evening! I’m Amanda Fader, a GYN oncologist at Johns Hopkins Hospital in Baltimore, MD. It’s a pleasure to be with all of you to talk about GYN cancers and COVID-19 issues. #gyncsm #sgocovid19 #covid19 @HopkinsMedicine
Shannon Westin @ShannonWestin
@KDRichardson924 @gyncsm @AdrienneEcana Welcome Kimberly!! #gyncsm
Shannon Westin @ShannonWestin
@Stigetta @ocrahope @SHAREing @SGO_org Hi Annie!!! #gyncsm
Dee Sparacio @womenofteal
@Stigetta @ocrahope @SHAREing @SGO_org Hi Annie - Thanks for your input on this very important chat #gyncsm
Shannon Westin @ShannonWestin
RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are…
GYN Cancer | #GYNCSM @gyncsm
The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy
EcanaAdrienne @AdrienneEcana
@gyncsm #gyncsm Adrienne of Atlanta, Endo Cancer Survivor, Empath Respiratory Therapist
Alexa Jett 🦋 @ohhiialexa
@AdrienneEcana @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Aren’t they just the best!!? #GYNCSM
Bhavana Pothuri @BPothuri
so excited to participate ! #GYNcsm #COVID19 #SGOCOVID19
Shannon Westin @ShannonWestin
@KestersonJoshua Welcome Josh! #gyncsm
Dee Sparacio @womenofteal
@BPothuri Thanks again for taking the time to join us tonight. #gyncsm
Mimi @Mimiinmendon
@gyncsm #gyncsm
Dee Sparacio @womenofteal
Dee here! Diagnosed #ovca Stage3B 2005, recurrence 2008, OC research advocate, blogger & co-moderator #gyncsm
Shannon Westin @ShannonWestin
@amandanfader @HopkinsMedicine Welcome Amanda!! #gyncsm
Chezilme 🏳️‍🌈🇨🇦🇨🇵 @chezilme
@gyncsm Hi, Cecile here, with low-grade #ovariancancer, in Montreal #gyncsm
Erica Bednar @EMBOSU
Hi everyone! I'm Erica, genetic counselor at MD Anderson -- happy to chat with you all this evening! #gyncsm
Dee Sparacio @womenofteal
@advocatemomdad Hi Deb - Hope you are doing well. We'll have to plan a lunch again after this is all over. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Please continue intro's and welcomes while @womenofteal and I start in w/ the "ground rules" :) and tips! #gyncsm
Alexa Jett 🦋 @ohhiialexa
@KDRichardson924 @gyncsm @AdrienneEcana So good to see you here, Kimberly!! #GYNCSM
Dee Sparacio @womenofteal
@KestersonJoshua Hi John Thanks again for joining us #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic.
EcanaAdrienne @AdrienneEcana
@BPothuri #gyncsm Sorry about SGO this year, was looking forward to it!!
Dee Sparacio @womenofteal
@ohhiialexa Glad you are here too #gyncsm
Dee Sparacio @womenofteal
@AliveAndKicknDD Waving hi #gyncsm
Shannon Westin @ShannonWestin
@EMBOSU Great to "see" you Erica! #gyncsm
Alexa Jett 🦋 @ohhiialexa
@womenofteal Thank you, Dee! #GYNCSM
Dee Sparacio @womenofteal
@amandanfader @HopkinsMedicine Hi Amanda Thanks for taking the time to join us #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy
Dee Sparacio @womenofteal
#gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history.
Shannon Westin @ShannonWestin
@AliveAndKicknDD Hey there Dave!!! #gyncsm
Amanda Nickles Fader, MD @amandanfader
@womenofteal @HopkinsMedicine Thank you for having me! #gyncsm
Michele Rhee @michelerhee
@gyncsm Hi! Michele from Boston joining in! #gyncsm https://t.co/OWM6NR8LNH
GYN Cancer | #GYNCSM @gyncsm
RT @womenofteal: #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and h…
Dee Sparacio @womenofteal
@chezilme @gyncsm Hi Cecile - Thanks for joining us #gyncsm
AfroGrandmom💛🖐🏾🙏🏾💋🥂✌🏾 @JustStop0691
@gyncsm Alrac from NC. 8 months remission from endo cancer. #gyncsm
Dee Sparacio @womenofteal
@EMBOSU Erica - glad you're here #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others abo…
GYN Cancer | #GYNCSM @gyncsm
Welcome to all those joining. We also welcome all those “listening in”. Be sure to tweet #gyncsm so we know you are here. You can always tweet, DM or email us with questions/comments after the chat is over.
Amanda Nickles Fader, MD @amandanfader
@JustStop0691 @gyncsm That is great to hear! #gyncsm
Shannon Westin @ShannonWestin
@AliveAndKicknDD Agree - it's been years, right?? #gyncsm
Alexa Jett 🦋 @ohhiialexa
@michelerhee @gyncsm Wooo! It’s the #AYACSM after party now! #GYNCSM https://t.co/vctvWAkdnm
Dee Sparacio @womenofteal
@michelerhee @gyncsm Hi Michele - Glad to see you here tonight and for always sharing info about the chat. #gyncsm
Dee Sparacio @womenofteal
@JustStop0691 @gyncsm Welcome! #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Welcome to all those joining. We also welcome all those “listening in”. Be sure to tweet #gyncsm so we know you are here. Y…
Shannon Westin @ShannonWestin
@JustStop0691 @gyncsm Welcome and congrats!! #gyncsm
Alexa Jett 🦋 @ohhiialexa
@JustStop0691 @gyncsm CONGRATULATIONS!! #GYNCSM https://t.co/Ux5FbQcMK6
Michele Rhee @michelerhee
@ohhiialexa @gyncsm YASSSS!!!! #AYACSM #GYNCSM https://t.co/uG6mIaetpK
GYN Cancer | #GYNCSM @gyncsm
Tonight #gyncsm is holding an Open Mic to talk about COVID-19 and its impact on those impacted by gyn cancers. And we are so grateful to @SGO_org for inviting their Covid-19 Task Force along.
Erica Bednar @EMBOSU
RT @gyncsm: Tonight #gyncsm is holding an Open Mic to talk about COVID-19 and its impact on those impacted by gyn cancers. And we are so…
Sarah Temkin @temkins
RT @gyncsm: Welcome to all those joining. We also welcome all those “listening in”. Be sure to tweet #gyncsm so we know you are here. Y…
Dee Sparacio @womenofteal
Remember - Twitter is an open social network and posts are public. Use a Direct Messages to exchange email addresses/personal info #gyncsm
Shannon Westin @ShannonWestin
RT @gyncsm: Tonight #gyncsm is holding an Open Mic to talk about COVID-19 and its impact on those impacted by gyn cancers. And we are so…
Dee Sparacio @womenofteal
RT @gyncsm: Tonight #gyncsm is holding an Open Mic to talk about COVID-19 and its impact on those impacted by gyn cancers. And we are so…
Michele Rhee @michelerhee
@womenofteal @gyncsm Thanks, Dee! Thank you for always being so supportive & welcoming! #gyncsm https://t.co/nudMgoZzvn
Dee Sparacio @womenofteal
Special shout out to all who have tweeted during the past month with the #gyncsm hashtag and those who RT'd about this chat.
GYN Cancer | #GYNCSM @gyncsm
Unlike our usual structured chat with set topic questions, we offering you, our participants, the “mic”. Feel free to ask questions, make comments or share how COVID-19 is impacting you. #gyncsm
Dee Sparacio @womenofteal
@beachbound624 @Stigetta @ocrahope @SHAREing @SGO_org Hi Linda , Glad you are here tonight. #gyncsm
Alexa Jett 🦋 @ohhiialexa
@michelerhee @gyncsm Ain’t no party like a cancer tweet chat party because the cancer party don’t stop! #AYACSM #GYNCSM https://t.co/9MGqn6fCoe
Bhavana Pothuri @BPothuri
@SGO_org focus is delivering #gyncancer care in a safe manner and minimizing #COVID19 exposure @SGO_org #GYNcsm #COVID19 #SGOCOVID19
Dee Sparacio @womenofteal
RT @gyncsm: Unlike our usual structured chat with set topic questions, we offering you, our participants, the “mic”. Feel free to ask ques…
GYN Cancer | #GYNCSM @gyncsm
Some potential questions for our discussion can be found on our #gyncsm blog page: https://t.co/JTLIoEEvtG
Shannon Westin @ShannonWestin
RT @gyncsm: Unlike our usual structured chat with set topic questions, we offering you, our participants, the “mic”. Feel free to ask ques…
Shannon Westin @ShannonWestin
@beachbound624 @Stigetta @ocrahope @SHAREing @SGO_org Welcome! #gyncsm
Dee Sparacio @womenofteal
For those of us already dealing with what cancer has done, is doing, and may do to our lives, it can be overwhelming to add to that a life-changing, life-challenging virus. #gyncsm
EcanaAdrienne @AdrienneEcana
@gyncsm @SGO_org #gyncsm Sister an Infustion Nurse just released from hospital after Covid related pneumonia
GYN Cancer | #GYNCSM @gyncsm
So wonderful to see so many new folks along. #gyncsm
Amanda Crowell Itliong @MIShouldTalk
Amanda here from Michigan. Living with ovarian cancer for the 4 th time in 11 years. In treatment now. #gyncsm
cathygee @cathygee
RT @womenofteal: For those of us already dealing with what cancer has done, is doing, and may do to our lives, it can be overwhelming to ad…
GYN Cancer | #GYNCSM @gyncsm
We are extremely grateful for the healthcare providers who are joining us for this chat. We know your time and energy are precious at all times, but are especially so now. #gyncsm
Dee Sparacio @womenofteal
@AdrienneEcana @gyncsm @SGO_org That is such good news. #gyncsm
Dee Sparacio @womenofteal
@MIShouldTalk Hi Amanda Happy to see you join us again. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
And without further ado... It's time for our open discussion on topics of your choice. Open Mic starts now! #gyncsm
Shannon Westin @ShannonWestin
This is important! We need to balance treating cancer with protecting our patients (and staff) from #COVID19 - We are really learning as we go. #gyncsm #SGOCOVID19
Dee Sparacio @womenofteal
RT @gyncsm: We are extremely grateful for the healthcare providers who are joining us for this chat. We know your time and energy are preci…
Inspire @teaminspire
RT @gyncsm: Unlike our usual structured chat with set topic questions, we offering you, our participants, the “mic”. Feel free to ask ques…
Amanda Nickles Fader, MD @amandanfader
@gyncsm We are so happy to be here! #gyncsm
Amanda Crowell Itliong @MIShouldTalk
@womenofteal Good to see you too! #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: This is important! We need to balance treating cancer with protecting our patients (and staff) from #COVID19 - We are r…
Dee Sparacio @womenofteal
RT @gyncsm: And without further ado... It's time for our open discussion on topics of your choice. Open Mic starts now! #gyncsm
Christina Lizaso @btrfly12
#gyncsm I'dlLove to hear how everyone is doing. What changes to your daily life/routines are you most struggling with?
Dee Sparacio @womenofteal
RT @btrfly12: #gyncsm I'dlLove to hear how everyone is doing. What changes to your daily life/routines are you most struggling with?
Annie Ellis @Stigetta
RT @btrfly12: #gyncsm I'dlLove to hear how everyone is doing. What changes to your daily life/routines are you most struggling with?
Amanda Crowell Itliong @MIShouldTalk
I’m having a really hard time deciding whether to go for my next blood test and then infusion during COVID-19 risk. I skipped one infusion already #gyncsm
Dee Sparacio @womenofteal
@btrfly12 For me the current situation brought a flood of memories when my blood counts were low during treatment and I missed so many family events. #gyncsm
Annie Ellis @Stigetta
@SGO_org COVID-19 Task Force has been working around the clock to develop strategies for doctors to continue to provide the very best care possible to their patients during these difficult times #gyncsm
Emma Rossi @RobinsonRossiGO
@gyncsm Emma Rossi gyn onc from North Carolina joining in. #gyncsm
Bhavana Pothuri @BPothuri
In #NYC #cancer care has been impacted. We are doing our best to care for our patients safely in the epicenter. #GYNcsm #COVID19 #SGOCOVID19
Christina Lizaso @btrfly12
@beachbound624 @gyncsm Just add #gyncsm to every tweet so the guests can see and respond. Thanks for joining. I think many have this concern: @beachbound624: "I am concerned about surgery delays in light of COVID 19"
EcanaAdrienne @AdrienneEcana
@btrfly12 #gyncsm this adds another layer of stress to our already fragile medical history.
Sarah Temkin @temkins
Totally @ShannonWestin. Every surgical procedure potentially exposes the patient and a dozen HCW to #COVID19. #PPE is still an issue in many places. And access to testing has been an issue as well.
Amanda Nickles Fader, MD @amandanfader
@btrfly12 The human connection is so important and what I love about caring for patients. With social distancing, it is challenging. #gyncsm
Dee Sparacio @womenofteal
RT @Stigetta: @SGO_org COVID-19 Task Force has been working around the clock to develop strategies for doctors to continue to provide the v…
Christina Lizaso @btrfly12
RT @womenofteal: For those of us already dealing with what cancer has done, is doing, and may do to our lives, it can be overwhelming to ad…
Chezilme 🏳️‍🌈🇨🇦🇨🇵 @chezilme
@btrfly12 Not too bad since doing chemo gave a taste of isolation. But i miss going outside to stay active #gyncsm
Bhavana Pothuri @BPothuri
@SGO_org focus is delivering #gyncancer care in a safe manner and minimizing #COVID19 exposure #GYNcsm #COVID19 #SGOCOVID19
Shannon Westin @ShannonWestin
I think the issue is that we don't know how long this is going to last - and we certainly want to keep you on track for your treatment. It's a difficulty decision #COVID19 #gyncsm
Dee Sparacio @womenofteal
@RobinsonRossiGO @gyncsm Hi Emma Welcome to the #gyncsm chat. Thanks for joining in.
Amanda Nickles Fader, MD @amandanfader
@btrfly12 But telemedicine allow us to keep very close tabs and communicate regularly with our cancer survivors. #gyncsm
Dee Sparacio @womenofteal
RT @BPothuri: In #NYC #cancer care has been impacted. We are doing our best to care for our patients safely in the epicenter. #GYNcsm #COVI
DaveisAliveAndKickn @AliveAndKicknDD
@btrfly12 Many lynch syndrome patients get annual tests, especially colonoscopies, so having them put off by even a few months can be stressful #gyncsm
Dee Sparacio @womenofteal
RT @AdrienneEcana: @btrfly12 #gyncsm this adds another layer of stress to our already fragile medical history.
Sarah Temkin @temkins
Totally @ShannonWestin. Every surgical procedure potentially exposes the patient and a dozen HCW to #COVID19. #PPE is still an issue in many places. And access to testing has been an issue as well. #gyncsm
Dee Sparacio @womenofteal
RT @amandanfader: @btrfly12 The human connection is so important and what I love about caring for patients. With social distancing, it is c…
Christina Lizaso @btrfly12
RT @ShannonWestin: I think the issue is that we don't know how long this is going to last - and we certainly want to keep you on track for…
Shannon Westin @ShannonWestin
RT @temkins: Totally @ShannonWestin. Every surgical procedure potentially exposes the patient and a dozen HCW to #COVID19. #PPE is still a…
Amanda Crowell Itliong @MIShouldTalk
@Stigetta @SGO_org Awesome! Like what? #gyncsm
Dee Sparacio @womenofteal
RT @BPothuri: @SGO_org focus is delivering #gyncancer care in a safe manner and minimizing #COVID19 exposure #GYNcsm #COVID19 #SGOCOVID19
Christina Lizaso @btrfly12
RT @BPothuri: @SGO_org focus is delivering #gyncancer care in a safe manner and minimizing #COVID19 exposure #GYNcsm #COVID19 #SGOCOVID19
Dee Sparacio @womenofteal
RT @ShannonWestin: I think the issue is that we don't know how long this is going to last - and we certainly want to keep you on track for…
Dee Sparacio @womenofteal
RT @amandanfader: @btrfly12 But telemedicine allow us to keep very close tabs and communicate regularly with our cancer survivors. #gyncsm
Dee Sparacio @womenofteal
RT @AliveAndKicknDD: @btrfly12 Many lynch syndrome patients get annual tests, especially colonoscopies, so having them put off by even a fe…
Inspire @teaminspire
RT @btrfly12: #gyncsm I'dlLove to hear how everyone is doing. What changes to your daily life/routines are you most struggling with?
Christina Lizaso @btrfly12
RT @womenofteal: @btrfly12 For me the current situation brought a flood of memories when my blood counts were low during treatment and I mi…
Alexa Jett 🦋 @ohhiialexa
I want to give the biggest of thanks to all the health care providers and medical staff. You guys are amazing each and every day! In Irish, thank you is “go raibh maith agat” which means “may you have goodness” I wish all the goodness for you! ❤️ #GYNCSM
Dee Sparacio @womenofteal
RT @temkins: Totally @ShannonWestin. Every surgical procedure potentially exposes the patient and a dozen HCW to #COVID19. #PPE is still a…
Shannon Westin @ShannonWestin
@MIShouldTalk @Stigetta @SGO_org They have been setting up guidelines for surgery, chemotherapy, clinical trials and telemedicine #gyncsm #COVID19 #SGOCOVID19
Michele Rhee @michelerhee
@MIShouldTalk When you’re making that decision, are there people/doctors/advocacy groups you go to for advice? And, I guess, are they able to help? #gyncsm
Bhavana Pothuri @BPothuri
Depends on how you are feeling and what your treating #MD thinks whether risks are greater than benefit; These are hard decisions and need to be individualized. .#GYNcsm #COVID19 #SGOCOVID19
Christina Lizaso @btrfly12
I'm fortunate that my annual MRI isn't due until July. Did miss my annual skin check. Was also considering a 3yr colonoscopy instead of 5yr but maybe a 4yr next year will be ok. #gyncsm
Sarah Temkin @temkins
To some degree there should be shared decision making about what the ideal plan is. In some cases, this decision has been resource dependent as to what is safest. #COVID19 #gyncsm
Shannon Westin @ShannonWestin
@beachbound624 There are some situations (high #COVID19 burden) where the institution has stopped all surgery - there is no choice yet. However, other institutions may be able to still do cancer surgery #gyncsm
Christina Lizaso @btrfly12
RT @ohhiialexa: I want to give the biggest of thanks to all the health care providers and medical staff. You guys are amazing each and ever…
Shannon Westin @ShannonWestin
RT @BPothuri: Depends on how you are feeling and what your treating #MD thinks whether risks are greater than benefit; These are hard deci…
Beachbound @beachbound624
@ShannonWestin I’m really concerned in event of recurrence surgery will not be an option #gyncsm
DaveisAliveAndKickn @AliveAndKicknDD
RT @amandanfader: @btrfly12 But telemedicine allow us to keep very close tabs and communicate regularly with our cancer survivors. #gyncsm
Dee Sparacio @womenofteal
@amandanfader @BPothuri
Bhavana Pothuri @BPothuri
Agree they can be stressful, but know it is more risky to come in now for a screening test. #GYNcsm #COVID19 #SGOCOVID19
Sarah Temkin @temkins
RT @ShannonWestin: @beachbound624 There are some situations (high #COVID19 burden) where the institution has stopped all surgery - there i…
Joshua Kesterson @KestersonJoshua
Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID 19 Task Force developing guidelines so no patients left behind/forgotten. #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: @MIShouldTalk @Stigetta @SGO_org They have been setting up guidelines for surgery, chemotherapy, clinical trials and tel…
Amanda Nickles Fader, MD @amandanfader
@btrfly12 Delays in cancer screening and health check ups should only be temporary. Trying to balance risks of medical care with exposures to COVID-19. #gyncsm
Dee Sparacio @womenofteal
Great question
Dee Sparacio @womenofteal
RT @BPothuri: Depends on how you are feeling and what your treating #MD thinks whether risks are greater than benefit; These are hard deci…
Alexa Jett 🦋 @ohhiialexa
It’s definitely not business as usual! My PCP was called to #COVID19 duty. I was scheduled to see her this month for a full check up. It’s okay though. We’re all making adjustments and I feel good that she’s helping others. #GYNCSM
Christina Lizaso @btrfly12
@KestersonJoshua don't forget to include #gyncsm :) @KestersonJoshua "Change is always stressful. The altered and decreased interpersonal interactions with patients and colleagues stinks."
Dee Sparacio @womenofteal
RT @temkins: To some degree there should be shared decision making about what the ideal plan is. In some cases, this decision has been reso…
Sarah Temkin @temkins
RT @KestersonJoshua: Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID…
Erica Bednar @EMBOSU
Genetic counselors across U.S. have been shifting our clinics to telephone/video & finding creative work-arounds to help patients access recommended genetic testing; we're doing our best to keep everyone safe, but missing in-person support of patients & families #gyncsm
EcanaAdrienne @AdrienneEcana
@amandanfader @btrfly12 #gyncsm I find that NOT taking the risk in these cases is the reward.
Dee Sparacio @womenofteal
@ShannonWestin @beachbound624 Are they allowing doctors to practice at hospitals they might not have privileges at? #gyncsm
Christina Lizaso @btrfly12
RT @amandanfader: @btrfly12 Delays in cancer screening and health check ups should only be temporary. Trying to balance risks of medical ca…
DaveisAliveAndKickn @AliveAndKicknDD
@BPothuri They understand. Some of us have developed cancer (me) within a year of a clear scope so...#gyncsm
Shannon Westin @ShannonWestin
@beachbound624 Only time will tell how long surgery will be limited from #COVID19 In setting of recurrence, however, surgery may not be the ideal primary therapy - your MD and team will help individualize your treatment #gyncsm
Amanda Crowell Itliong @MIShouldTalk
Many of us are more comfortable with thinking of death but a COVID death alone feels so much worse than we’re used to thinking about. #gyncsm
Shannon Westin @ShannonWestin
RT @EMBOSU: Genetic counselors across U.S. have been shifting our clinics to telephone/video & finding creative work-arounds to help patien…
Christina Lizaso @btrfly12
RT @EMBOSU: Genetic counselors across U.S. have been shifting our clinics to telephone/video & finding creative work-arounds to help patien…
Joshua Kesterson @KestersonJoshua
@michelerhee @MIShouldTalk SGO COVID-19 Task Force developing guidance for chemotherapy and surgery considerations in COVID crisis. #gyncsm
Michele Rhee @michelerhee
@Stigetta @SGO_org Are there any patients/advocates included in the task force to provide the patient perspective on things like risk tolerance & patient preference? #gyncsm
Dee Sparacio @womenofteal
@beachbound624 @ShannonWestin I hear you. That would be my concern now too. Even for scan s some radiology places have limited availablity #gyncsm
Sarah Temkin @temkins
@EMBOSU This has been amazing. Do you think this will last? For certain encounters telemedicine seems better than in-person. Maybe more efficient and convenient? #gyncsm
Shannon Westin @ShannonWestin
RT @KestersonJoshua: @michelerhee @MIShouldTalk SGO COVID-19 Task Force developing guidance for chemotherapy and surgery considerations in…
Dee Sparacio @womenofteal
RT @KestersonJoshua: Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID…
Shannon Westin @ShannonWestin
RT @BPothuri: Agree they can be stressful, but know it is more risky to come in now for a screening test. #GYNcsm #COVID19 #SGOCOVID19 http…
Christina Lizaso @btrfly12
RT @KestersonJoshua: Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID…
Dee Sparacio @womenofteal
Something to keep in mind. #gyncsm
Alexa Jett 🦋 @ohhiialexa
@EMBOSU Is it business as usual but only telehealth for GC right now, or have things really changed for you guys? #GYNCSM
Dee Sparacio @womenofteal
RT @btrfly12: @KestersonJoshua don't forget to include #gyncsm :) @KestersonJoshua "Change is always stressful. The altered and decrease…
Bhavana Pothuri @BPothuri
Yes in high #COVID burden areas this is the case. But even in these areas we are able to do cases that we deem are necessary. Working hard to maintain care so it does not impact outcomes. #GYNcsm #COVID19 #SGOCOVID19
Dee Sparacio @womenofteal
RT @EMBOSU: Genetic counselors across U.S. have been shifting our clinics to telephone/video & finding creative work-arounds to help patien…
EcanaAdrienne @AdrienneEcana
@michelerhee @Stigetta @SGO_org #gyncsm Not that I’m aware
DaveisAliveAndKickn @AliveAndKicknDD
RT @MIShouldTalk: Many of us are more comfortable with thinking of death but a COVID death alone feels so much worse than we’re used to thi…
Amanda Crowell Itliong @MIShouldTalk
My doctor and I have to weigh the risks together but it’s my decision. Cancer will probably kill me but getting COVID would almost certainly kill me quickly. Not much of a choice in a high risk area. #gyncsm
Alexa Jett 🦋 @ohhiialexa
@michelerhee @Stigetta @SGO_org Co-signing this question #GYNCSM
Shannon Westin @ShannonWestin
@womenofteal @beachbound624 This is still a work in progress. Telemedicine is one option but there are different laws/regulations across states #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: @beachbound624 Only time will tell how long surgery will be limited from #COVID19 In setting of recurrence, however, su…
Alexa Jett 🦋 @ohhiialexa
@KestersonJoshua @EMBOSU Genetic counseling #GYNCSM
Amanda Nickles Fader, MD @amandanfader
Agree, @temkins. Telemedicine is a great alternative to deliver care for our patients and cancer survivors. #gynscm
Shannon Westin @ShannonWestin
@ohhiialexa @michelerhee @Stigetta @SGO_org .@Stigetta is on the task force - she is an amazing advocate! #gyncsm
Shannon Westin @ShannonWestin
RT @BPothuri: Yes in high #COVID burden areas this is the case. But even in these areas we are able to do cases that we deem are necessary.…
Bhavana Pothuri @BPothuri
Yes lots of #MDs getting deployed to help on COVID-19 floors. We are trying to help the best we can where we are all needed. Thanks for understanding. #GYNcsm #COVID19 #SGOCOVID19
Annie Ellis @Stigetta
@ohhiialexa @michelerhee @SGO_org I am a p-atient advocate member of @SGO_org COVID-19 Task Force #gyncsm
Erica Bednar @EMBOSU
@temkins Telegenetics existed prior to the pandemic, but clinic capabilities vary place by place -- driven most by state, local, federal laws & payer, institutional policies. Its a great solution for now, but hope if it continues that it can be done in a sustainable way! #gyncsm
Annie Ellis @Stigetta
@AdrienneEcana @michelerhee @SGO_org I am a atient advocate member of @SGO_org COVID-19 Task Force #gyncsm
Christina Lizaso @btrfly12
I'm seeing more and more resources emerging every day as we all try to re-do our routines. Change is always hard. The amount of resources for cancer patients is increasing too. Glad top minds are working hard on guidelines. #gyncsm
Dee Sparacio @womenofteal
@MIShouldTalk I feel the same way. My worst fear is not having family by my side If I get the virus. Their presence helped so much during treatment. #gyncsm
Michele Rhee @michelerhee
@AdrienneEcana @Stigetta @SGO_org It might be helpful to include that patient perspective in the guideline development to make sure that you’re not missing that viewpoint. The patient perspective isn’t the only data point, but it’s a valuable one. #gyncsm
Shannon Westin @ShannonWestin
@beachbound624 a combination of both - most hospitals in a given area will have similar regulations. In NYC there are #COVID19 hospitals #gyncsm
Dee Sparacio @womenofteal
RT @KestersonJoshua: @michelerhee @MIShouldTalk SGO COVID-19 Task Force developing guidance for chemotherapy and surgery considerations in…
Shannon Westin @ShannonWestin
RT @EMBOSU: @temkins Telegenetics existed prior to the pandemic, but clinic capabilities vary place by place -- driven most by state, local…
Joshua Kesterson @KestersonJoshua
@ohhiialexa @EMBOSU #gyncsm Things are impacted in as much as the prevalence of COVID in geographic area.
Dee Sparacio @womenofteal
RT @Stigetta: @AdrienneEcana @michelerhee @SGO_org I am a atient advocate member of @SGO_org COVID-19 Task Force #gyncsm
Shannon Westin @ShannonWestin
RT @amandanfader: @btrfly12 Delays in cancer screening and health check ups should only be temporary. Trying to balance risks of medical ca…
Shannon Westin @ShannonWestin
RT @KestersonJoshua: Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID…
Sarah Temkin @temkins
RT @womenofteal: @MIShouldTalk I feel the same way. My worst fear is not having family by my side If I get the virus. Their presence helped…
Dee Sparacio @womenofteal
RT @ShannonWestin: @beachbound624 a combination of both - most hospitals in a given area will have similar regulations. In NYC there are #…
Annie Ellis @Stigetta
As a Patient advocate member of @SGO_org COVID-19 Task Force, I can assure you that caring for patients is their priority at all times. The patient perspective is embraced at every meeting. #gyncsm
Dee Sparacio @womenofteal
RT @BPothuri: Yes in high #COVID burden areas this is the case. But even in these areas we are able to do cases that we deem are necessary.…
Alexa Jett 🦋 @ohhiialexa
@BPothuri Yes! We are in a medical crisis, and all of the general public needs to understand just like in the military, doctors can get called to the front lines. I am so happy because I would want her to be my loved one’s doctor if they contracted #COVID19 ! #GYNCSM
Shannon Westin @ShannonWestin
RT @BPothuri: Yes lots of #MDs getting deployed to help on COVID-19 floors. We are trying to help the best we can where we are all needed.…
Stacey Tinianov @coffeemommy
@btrfly12 What are your top resource suggestions Christina? (And yes, stopping by to wave and share hugs with #gyncsm) 💗
Joshua Kesterson @KestersonJoshua
@michelerhee @AdrienneEcana @Stigetta @SGO_org #gyncsm absolutely! agreed. Working on guidelines/rescources. Please visit Foundationforwomenscancer website
Dee Sparacio @womenofteal
@michelerhee @Stigetta @SGO_org @AdrienneEcana @Stigetta is a patient advocate on the Task force #gyncsm
EcanaAdrienne @AdrienneEcana
@Stigetta @SGO_org #gyncsm Thank you for your representation!!
Christina Lizaso @btrfly12
#gyncsm What are some of the best cancer (and non-cancer) Covid-19 resources you have seen? What do you think are some of the most important things for gyn cancer patients to know?
Michele Rhee @michelerhee
@Stigetta @SGO_org Yay!! So happy you’re involved! #gyncsm
Shannon Westin @ShannonWestin
RT @Stigetta: As a Patient advocate member of @SGO_org COVID-19 Task Force, I can assure you that caring for patients is their priority at…
Dee Sparacio @womenofteal
RT @ShannonWestin: @womenofteal @beachbound624 This is still a work in progress. Telemedicine is one option but there are different laws/re…
Shannon Westin @ShannonWestin
RT @ohhiialexa: @BPothuri Yes! We are in a medical crisis, and all of the general public needs to understand just like in the military, doc…
Bhavana Pothuri @BPothuri
Yes- I know and it is hard and will hopefully ease in a couple of months. I am not recc screening now for my patients. #GYNcsm #COVID19 #SGOCOVID19
Dee Sparacio @womenofteal
RT @BPothuri: Yes lots of #MDs getting deployed to help on COVID-19 floors. We are trying to help the best we can where we are all needed.…
Dee Sparacio @womenofteal
@EMBOSU @temkins I had another genetics test right before this all happened and I had the results discussion on the phone #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: I'm seeing more and more resources emerging every day as we all try to re-do our routines. Change is always hard. The amount…
Inspire @teaminspire
RT @btrfly12: #gyncsm What are some of the best cancer (and non-cancer) Covid-19 resources you have seen? What do you think are some of t…
Joshua Kesterson @KestersonJoshua
@btrfly12 #gyncsm I've visited the CDC website more in last month than I have in my entire lifetime to be honest
Dee Sparacio @womenofteal
RT @KestersonJoshua: @ohhiialexa @EMBOSU #gyncsm Things are impacted in as much as the prevalence of COVID in geographic area.
Amanda Nickles Fader, MD @amandanfader
Agree, @Stigetta! Our patients and their care are priority #1 with every COVID-19 guideline we write. #gyncsm
Dee Sparacio @womenofteal
RT @Stigetta: As a Patient advocate member of @SGO_org COVID-19 Task Force, I can assure you that caring for patients is their priority at…
Christina Lizaso @btrfly12
Covid19 resources for gyn cancer patients: Foundation for Women’s Cancer @GYNcancer https://t.co/kMxQM6dgA2 https://t.co/LhtUGGABUv #gyncsm
Erica Bednar @EMBOSU
@ohhiialexa It's a bit different place by place depending on state laws & clinic policies. luckily we can do most things remotely but we can be limited by laws, federal policies (GCs aren't recognized as providers by Medicare) & processes (some labs easier to use than others) #gyncsm
Amanda Crowell Itliong @MIShouldTalk
So where are these SGO guidelines available? #gyncsm
Joshua Kesterson @KestersonJoshua
@womenofteal @EMBOSU @temkins #gyncsm Dee, how was that versus an inperson visit?
Dee Sparacio @womenofteal
RT @coffeemommy: @btrfly12 What are your top resource suggestions Christina? (And yes, stopping by to wave and share hugs with #gyncsm) 💗
Annie Ellis @Stigetta
@michelerhee @AdrienneEcana @SGO_org The @SGO_org COVID-19 Task Force puts patents first in all their guidelines. They have been very responsive to the patient perspective! #gyncsm
Emma Rossi @RobinsonRossiGO
@temkins @EMBOSU Yes. Discussing scan or pathology results by web visits are more personal than telephone & more timely than bringing patients in to the office. But how do patients feel about getting this kind of news via video conference? #gyncsm
Dee Sparacio @womenofteal
@coffeemommy @btrfly12 Hi there Stacey! We've got a few to share. #gyncsm
Sarah Temkin @temkins
Except when telehealth becomes telehell! 🤣😂 #COVID19 #gyncsm https://t.co/xD73P3UNpe
Bhavana Pothuri @BPothuri
Annie has been present and voiced great concerns. So important to hear the patient perspective as we develop content for the #SGOCOVID19 TF #GYNcsm #COVID19
Dee Sparacio @womenofteal
RT @KestersonJoshua: @michelerhee @AdrienneEcana @Stigetta @SGO_org #gyncsm absolutely! agreed. Working on guidelines/rescources. Please…
DaveisAliveAndKickn @AliveAndKicknDD
@BPothuri It gives me a hall pass when I tell Julia Smith I’m behind on my scans. 😀 #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: #gyncsm What are some of the best cancer (and non-cancer) Covid-19 resources you have seen? What do you think are some of t…
Sarah Temkin @temkins
RT @RobinsonRossiGO: @temkins @EMBOSU Yes. Discussing scan or pathology results by web visits are more personal than telephone & more timel…
Alexa Jett 🦋 @ohhiialexa
For AYA’s, check out @ElephantsTea ‘s #COVID19 resource page. I love @DansHouseofHope, @LacunaLoft, and @MDAndersonNews Cancer 180 program also for additional resources! #GYNCSM https://t.co/bvAqQQhUvg
Dee Sparacio @womenofteal
RT @BPothuri: Yes- I know and it is hard and will hopefully ease in a couple of months. I am not recc screening now for my patients. #GYNcs
DaveisAliveAndKickn @AliveAndKicknDD
RT @btrfly12: Covid19 resources for gyn cancer patients: Foundation for Women’s Cancer @GYNcancer https://t.co/kMxQM6dgA2 https://t.co/…
Dee Sparacio @womenofteal
RT @amandanfader: Agree, @Stigetta! Our patients and their care are priority #1 with every COVID-19 guideline we write. #gyncsm https://t.c…
Sarah Temkin @temkins
RT @womenofteal: @EMBOSU @temkins I had another genetics test right before this all happened and I had the results discussion on the phone…
Shannon Westin @ShannonWestin
The @SGO_org website is a great resource for #COVID19 https://t.co/CIZMpnMG7a #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: Covid19 resources for gyn cancer patients: Foundation for Women’s Cancer @GYNcancer https://t.co/kMxQM6dgA2 https://t.co/…
Christina Lizaso @btrfly12
Covid19 webinars this week for cancer patients: Join @CancerAdvocacy Thursday, April 9, Noon ET: https://t.co/VisaG7yNvI Join @SHAREing and @GYNCancer on Friday, April 10 at 2pm ET https://t.co/vBc3KWfiGe #gyncsm
Joshua Kesterson @KestersonJoshua
@Stigetta @michelerhee @AdrienneEcana @SGO_org #gyncsm thanks annie. you and your fellow patients are why the taskforce exists, why we do what we do
Amanda Nickles Fader, MD @amandanfader
@btrfly12 The SGO COVID-19 Task Force guidelines are specific for GYN cancers. #gyncsm https://t.co/f6Vl0Jv8tq
Christina Lizaso @btrfly12
RT @ohhiialexa: For AYA’s, check out @ElephantsTea ‘s #COVID19 resource page. I love @DansHouseofHope, @LacunaLoft, and @MDAndersonNews Can…
FdtnForWomensCancer @GYNCancer
RT @Stigetta: As a Patient advocate member of @SGO_org COVID-19 Task Force, I can assure you that caring for patients is their priority at…
Shannon Westin @ShannonWestin
RT @amandanfader: @btrfly12 The SGO COVID-19 Task Force guidelines are specific for GYN cancers. #gyncsm https://t.co/f6Vl0Jv8tq
Amanda Nickles Fader, MD @amandanfader
@KestersonJoshua @Stigetta @michelerhee @AdrienneEcana @SGO_org Here, here!! #gyncsm
Joshua Kesterson @KestersonJoshua
@beachbound624 @Stigetta @SGO_org yes. ASAP #gyncsm
Sarah Temkin @temkins
RT @KestersonJoshua: @Stigetta @michelerhee @AdrienneEcana @SGO_org #gyncsm thanks annie. you and your fellow patients are why the taskfor…
Christina Lizaso @btrfly12
RT @amandanfader: @btrfly12 The SGO COVID-19 Task Force guidelines are specific for GYN cancers. #gyncsm https://t.co/f6Vl0Jv8tq
Amanda Nickles Fader, MD @amandanfader
@beachbound624 @Stigetta @SGO_org Yes, they are published online and being submitted for publication in peer reviewed medical journals. #gyncsm
Dee Sparacio @womenofteal
@KestersonJoshua @EMBOSU @temkins It went well. I had the pre- test visit filling in pedigree etc so I had time to get to know the counselor. This was do an expanded panel to follow up on my tumor testing. #gyncsm
Stacey Tinianov @coffeemommy
@RobinsonRossiGO @temkins @EMBOSU Well before #COVID19 was an issue, I was told my biopsy results were positive for cancer over the phone. Telehealth / video conference feels a bit more personal at least. #gyncsm
Dee Sparacio @womenofteal
RT @RobinsonRossiGO: @temkins @EMBOSU Yes. Discussing scan or pathology results by web visits are more personal than telephone & more timel…
Tanya Temkin @tanyaltee
Hi. Sorry I lost track of time so I’m late. It’s a side effect of sheltering in place. #gyncsm
EcanaAdrienne @AdrienneEcana
@btrfly12 @CancerAdvocacy @SHAREing @GYNCancer #gyncsm I appreciate this info!! Will add to my calendar.
DaveisAliveAndKickn @AliveAndKicknDD
@RobinsonRossiGO @temkins @EMBOSU Anecdotally, patients are telling me that they were given results electronically and that they’re comfortable with the process #gyncsm
Dee Sparacio @womenofteal
@temkins HAHA - I had that happen the other day for a support group meeting - I was 5 minutes too early. #gyncsm
Alexa Jett 🦋 @ohhiialexa
@EMBOSU That’s definitely interesting. I believe that GC’s are a huge factor in the care team, and that genetic testing makes healthcare better. Especially for AYA’s and long term screenings. Disappointing that you aren’t getting the recognition you deserve. #GYNCSM
Dee Sparacio @womenofteal
RT @BPothuri: Annie has been present and voiced great concerns. So important to hear the patient perspective as we develop content for the…
Shannon Westin @ShannonWestin
@beachbound624 @Stigetta @SGO_org We just submitted our chemotherapy and #clinicaltrials guidelines to a peer-reviewed journal - rapid turn around and teamwork - @BPothuri led this effort!! #gyncsm #COVID19 #SGOCOVID19
Christina Lizaso @btrfly12
#gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer is invited to complete this survey from research advocate @Stigetta on survivors' experiences during the COVID-19 pandemic. https://t.co/fzCt66ojZ3
Annie Ellis @Stigetta
RT @ShannonWestin: @beachbound624 @Stigetta @SGO_org We just submitted our chemotherapy and #clinicaltrials guidelines to a peer-reviewed j…
Dee Sparacio @womenofteal
RT @ShannonWestin: The @SGO_org website is a great resource for #COVID19 https://t.co/CIZMpnMG7a #gyncsm https://t.co/96ahXqwEmT
Dee Sparacio @womenofteal
RT @btrfly12: Covid19 webinars this week for cancer patients: Join @CancerAdvocacy Thursday, April 9, Noon ET: https://t.co/VisaG7yNvI Jo…
Bhavana Pothuri @BPothuri
FWC COVID 19 page is an excellent patient resource. Also reach us on the FWC facebook page which is supported by the #SGO communications committee. #COVID19 #GYNcsm #SGOCOVID19
Shannon Westin @ShannonWestin
RT @btrfly12: Covid19 webinars this week for cancer patients: Join @CancerAdvocacy Thursday, April 9, Noon ET: https://t.co/VisaG7yNvI Jo…
Joshua Kesterson @KestersonJoshua
@coffeemommy @RobinsonRossiGO @temkins @EMBOSU #gyncsm That's the feedback I've gotten from patients as well. Feels better knowing you're talking to a real, living, breathing, caring human being than just a voice on the telephone.
Michele Rhee @michelerhee
RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i…
Annie Ellis @Stigetta
RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i…
Alexa Jett 🦋 @ohhiialexa
RT @btrfly12: Covid19 webinars this week for cancer patients: Join @CancerAdvocacy Thursday, April 9, Noon ET: https://t.co/VisaG7yNvI Jo…
Dee Sparacio @womenofteal
Resource: @DrMarkham- What People With Cancer Need to Know https://t.co/t8SRueBT5j on @CancerDotNet #gyncsm
Alexa Jett 🦋 @ohhiialexa
@tanyaltee Hey Tanya! #GYNCSM
Christina Lizaso @btrfly12
#gyncsm @SHAREing COVID-19 Updates for Gynecologic Cancer Patients https://t.co/tX0DlaSfyJ
Tanya Temkin @tanyaltee
One concerning hear a lot about is whether people on maintenance such as PARPs are immunocompromised even if labs are normal. #gyncsm
Dee Sparacio @womenofteal
RT @amandanfader: @btrfly12 The SGO COVID-19 Task Force guidelines are specific for GYN cancers. #gyncsm https://t.co/f6Vl0Jv8tq
Sarah Temkin @temkins
RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i…
Shannon Westin @ShannonWestin
@KestersonJoshua @coffeemommy @RobinsonRossiGO @temkins @EMBOSU I prefer it to telephone calls!!! #gyncsm
Alexa Jett 🦋 @ohhiialexa
RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i…
Christina Lizaso @btrfly12
RT @BPothuri: FWC COVID 19 page is an excellent patient resource. Also reach us on the FWC facebook page which is supported by the #SGO com…
Shannon Westin @ShannonWestin
RT @BPothuri: FWC COVID 19 page is an excellent patient resource. Also reach us on the FWC facebook page which is supported by the #SGO com…
Annie Ellis @Stigetta
Questions? Comments? Concerns? for @SGO_org & @GYNCancer? You can leave a post FWC’s Facebook page! https://t.co/MZrSepNzHG #gyncsm
Stacey Tinianov @coffeemommy
@KestersonJoshua @RobinsonRossiGO @temkins @EMBOSU +1 Eye contact, body language, all the non-verbal cues that can help communicate empathy and compassion. #gyncsm
Dee Sparacio @womenofteal
@tanyaltee Glad you made it. I forget what day of the week it is now. #gyncsm
Amanda Nickles Fader, MD @amandanfader
@tanyaltee Regardless of the type of treatment, the best advice is to talk with your cancer care team about whether or not any modifications to your cancer treatment regimen are necessary. #gyncsm
Chezilme 🏳️‍🌈🇨🇦🇨🇵 @chezilme
RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i…
Annie Ellis @Stigetta
RT @btrfly12: #gyncsm @SHAREing COVID-19 Updates for Gynecologic Cancer Patients https://t.co/tX0DlaSfyJ
Shannon Westin @ShannonWestin
Awesome opportunity to share your #COVID19 experience as a #ovariancancer #survivor - check it out!! #gyncsm
Dee Sparacio @womenofteal
RT @ohhiialexa: @EMBOSU That’s definitely interesting. I believe that GC’s are a huge factor in the care team, and that genetic testing mak…
Erica Bednar @EMBOSU
@ohhiialexa Thanks! We can use all of the support we can get -- @GeneticCouns have legislation introduced to help improve genetic counselor recognition by Medicare. Here is more info: https://t.co/WqsWj8cV8U #gyncsm
Sarah Temkin @temkins
@ShannonWestin @KestersonJoshua @coffeemommy @RobinsonRossiGO @EMBOSU Agree! It's way better than a phone call. Half the time I call patients and right before I hang up they go "Oh, I didn't realize it was you, Dr. Temkin!" #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: @beachbound624 @Stigetta @SGO_org We just submitted our chemotherapy and #clinicaltrials guidelines to a peer-reviewed j…
DaveisAliveAndKickn @AliveAndKicknDD
RT @ohhiialexa: @EMBOSU That’s definitely interesting. I believe that GC’s are a huge factor in the care team, and that genetic testing mak…
Shannon Westin @ShannonWestin
RT @amandanfader: @tanyaltee Regardless of the type of treatment, the best advice is to talk with your cancer care team about whether or no…
Dee Sparacio @womenofteal
RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i…
Dee Sparacio @womenofteal
RT @BPothuri: FWC COVID 19 page is an excellent patient resource. Also reach us on the FWC facebook page which is supported by the #SGO com…
Bhavana Pothuri @BPothuri
me too! #COVID19 #GYNcsm #SGOCOVID19
Dee Sparacio @womenofteal
RT @btrfly12: #gyncsm @SHAREing COVID-19 Updates for Gynecologic Cancer Patients https://t.co/tX0DlaSfyJ
Annie Ellis @Stigetta
RT @ShannonWestin: Awesome opportunity to share your #COVID19 experience as a #ovariancancer #survivor - check it out!! #gyncsm https://t.c…
DaveisAliveAndKickn @AliveAndKicknDD
RT @womenofteal: Resource: @DrMarkham- What People With Cancer Need to Know https://t.co/t8SRueBT5j on @CancerDotNet #gyncsm
Christina Lizaso @btrfly12
Yes. And you aren't "bothering" them! They are all working tirelessly but they don't want you to hold in your questions. Reach out to your care team #gyncsm
EcanaAdrienne @AdrienneEcana
@ShannonWestin #gyncsm Unfortunately, I qualify for this survey as well (LOL), will be happy to participate!!
Emma Rossi @RobinsonRossiGO
@ShannonWestin @KestersonJoshua @coffeemommy @temkins @EMBOSU It’s definitely a practice change that I’m going to do more of even when this is all “over”. Now that I’ve ironed out the kinks. #gyncsm
Shannon Westin @ShannonWestin
RT @Stigetta: Questions? Comments? Concerns? for @SGO_org & @GYNCancer? You can leave a post FWC’s Facebook page! https://t.co/MZrSepNzHG #…
Amanda Crowell Itliong @MIShouldTalk
@ShannonWestin @SGO_org Thank you SGO team! Looks like you’ve put in lots of hard work! I guess even though this is maybe my last hope, since my infusions aren’t curative and might not even be working, guidelines would say to put it off. #gyncsm
Shannon Westin @ShannonWestin
RT @btrfly12: #gyncsm @SHAREing COVID-19 Updates for Gynecologic Cancer Patients https://t.co/tX0DlaSfyJ
Bhavana Pothuri @BPothuri
definitely agree. These decisions are so nuanced and only you and your doctor can make them after reviewing the risks and benefits and your individual needs. #COVID19 #GYNcsm #SGOCOVID19
Dee Sparacio @womenofteal
Great question @KestersonJoshua
Shannon Westin @ShannonWestin
RT @womenofteal: Resource: @DrMarkham- What People With Cancer Need to Know https://t.co/t8SRueBT5j on @CancerDotNet #gyncsm
Joshua Kesterson @KestersonJoshua
@EMBOSU @ohhiialexa @GeneticCouns Genetics is one of the fastest growing fields in medicine. GC's role in cancer care will only increase in future. #gyncsm
Mimi @Mimiinmendon
RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i…
Dee Sparacio @womenofteal
RT @amandanfader: @tanyaltee Regardless of the type of treatment, the best advice is to talk with your cancer care team about whether or no…
Alexa Jett 🦋 @ohhiialexa
@EMBOSU @GeneticCouns Thank you, I am with you 100% and I will look more into how I can help add my voice. Medicare must cover it! #GYNCSM
Sarah Temkin @temkins
RT @RobinsonRossiGO: @ShannonWestin @KestersonJoshua @coffeemommy @temkins @EMBOSU It’s definitely a practice change that I’m going to do m…
Dee Sparacio @womenofteal
I have completed this survey ...Have You?
Shannon Westin @ShannonWestin
I think it's going to become more acceptable to patients and providers - we are going to normalize this and reduce travel!!! #gyncsm
Sarah Temkin @temkins
RT @btrfly12: Yes. And you aren't "bothering" them! They are all working tirelessly but they don't want you to hold in your questions. Reac…
Dee Sparacio @womenofteal
RT @EMBOSU: @ohhiialexa Thanks! We can use all of the support we can get -- @GeneticCouns have legislation introduced to help improve genet…
Dee Sparacio @womenofteal
RT @btrfly12: Yes. And you aren't "bothering" them! They are all working tirelessly but they don't want you to hold in your questions. Reac…
Annie Ellis @Stigetta
RT @BPothuri: definitely agree. These decisions are so nuanced and only you and your doctor can make them after reviewing the risks and ben…
Amanda Nickles Fader, MD @amandanfader
@MIShouldTalk @ShannonWestin @SGO_org Hang in there! Cancer care is still being prioritized, but changes are being made to minimize patients' risk of exposure - especially important as we recognize that cancer patients may be at high risk for becoming quite ill from COVID-19. #gyncsm
Christina Lizaso @btrfly12
.@FacingOurRisk has put out some great resources: Coping with Hereditary Cancer During the COVID-19 Pandemic https://t.co/1NgVdUQbDM A second helping of stress: Coping with hereditary cancer during the COVID-19 pandemic - register to view https://t.co/IF7dXu0WBd #gyncsm
Alexa Jett 🦋 @ohhiialexa
RT @btrfly12: Yes. And you aren't "bothering" them! They are all working tirelessly but they don't want you to hold in your questions. Reac…
Dee Sparacio @womenofteal
RT @ShannonWestin: I think it's going to become more acceptable to patients and providers - we are going to normalize this and reduce trave…
Amanda Crowell Itliong @MIShouldTalk
I guess I don’t know what I need other than to feel heard, not alone in making the life/death decisions about treatment vs. COVID risk. I’ve been on a few conference calls and all the other advocates don’t actually have cancer now. #gyncsm
EcanaAdrienne @AdrienneEcana
@ShannonWestin #gyncsm I wonder if it will also reduce Anxiety!!
Annie Ellis @Stigetta
RT @btrfly12: Yes. And you aren't "bothering" them! They are all working tirelessly but they don't want you to hold in your questions. Reac…
Bhavana Pothuri @BPothuri
Agree- telemedicine is here to stay and we learned to use it in 2 days! #COVID19 #GYNcsm #SGOCOVID19
Sarah Temkin @temkins
There are patients with poor internet connections or without devices. I worry about their access. #cancerdisparities #gyncsm
Shannon Westin @ShannonWestin
RT @temkins: There are patients with poor internet connections or without devices. I worry about their access. #cancerdisparities #gyncsm h…
Alexa Jett 🦋 @ohhiialexa
RT @amandanfader: @MIShouldTalk @ShannonWestin @SGO_org Hang in there! Cancer care is still being prioritized, but changes are being made…
Dee Sparacio @womenofteal
Another resource: @CancerAdvocacy Coronavirus and Cancer Resources for Survivors https://t.co/RctGtp35fV #gyncsm
Joshua Kesterson @KestersonJoshua
@ShannonWestin #gyncsm Agree Shannon. Theres no going back now. Something good has to come out of the COVID crisis and telemedicine and the improved patient access and convenience is going to be one of those positives.
Erica Bednar @EMBOSU
RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i…
Dee Sparacio @womenofteal
RT @temkins: There are patients with poor internet connections or without devices. I worry about their access. #cancerdisparities #gyncsm h…
Stacey Tinianov @coffeemommy
@ShannonWestin Hope we will also see sustainable improvement in accessibility of second opinions with reimbursement for televisits. #gyncsm
Shannon Westin @ShannonWestin
This is true - we will continue to care for them the best ways that we can - but it is a huge disparity #gyncsm
Sarah Temkin @temkins
RT @ShannonWestin: This is true - we will continue to care for them the best ways that we can - but it is a huge disparity #gyncsm https:/…
Dee Sparacio @womenofteal
RT @ShannonWestin: This is true - we will continue to care for them the best ways that we can - but it is a huge disparity #gyncsm https:/…
Amanda Nickles Fader, MD @amandanfader
@MIShouldTalk @MIShouldTalk, you are not alone or forgotten! We've got your back!!!! We are thinking about these issues 24/7. #gyncsm
Sarah Temkin @temkins
RT @coffeemommy: @ShannonWestin Hope we will also see sustainable improvement in accessibility of second opinions with reimbursement for te…
Shannon Westin @ShannonWestin
RT @BPothuri: Agree- telemedicine is here to stay and we learned to use it in 2 days! #COVID19 #GYNcsm #SGOCOVID19 https://t.co/mjGEDDHl…
Dee Sparacio @womenofteal
RT @coffeemommy: @ShannonWestin Hope we will also see sustainable improvement in accessibility of second opinions with reimbursement for te…
Sarah Temkin @temkins
RT @KestersonJoshua: @ShannonWestin #gyncsm Agree Shannon. Theres no going back now. Something good has to come out of the COVID crisis a…
Sarah Temkin @temkins
RT @womenofteal: Another resource: @CancerAdvocacy Coronavirus and Cancer Resources for Survivors https://t.co/RctGtp35fV #gyncsm
Bhavana Pothuri @BPothuri
Please understand that you all are very important and we are making the best decisions we can during this time of greater infection risk and increased resource limitations. Thank-you for your patience and understanding #COVID19 #GYNcsm #SGOCOVID19
Joshua Kesterson @KestersonJoshua
@MIShouldTalk #gyncsm Not Alone. On your side.
Shannon Westin @ShannonWestin
RT @BPothuri: Please understand that you all are very important and we are making the best decisions we can during this time of greater inf…
Dee Sparacio @womenofteal
RT @amandanfader: @MIShouldTalk @ShannonWestin @SGO_org Hang in there! Cancer care is still being prioritized, but changes are being made…
Christina Lizaso @btrfly12
There are already studies trying to tackle the big questions: How long is it safe to delay gynecologic cancer surgery? By @RobinsonRossiGO https://t.co/1I33Q6i40W #gyncsm
DaveisAliveAndKickn @AliveAndKicknDD
RT @BPothuri: Agree- telemedicine is here to stay and we learned to use it in 2 days! #COVID19 #GYNcsm #SGOCOVID19
Shannon Westin @ShannonWestin
RT @btrfly12: There are already studies trying to tackle the big questions: How long is it safe to delay gynecologic cancer surgery? By @…
liz swisher @SwisherLiz
RT @BPothuri: FWC COVID 19 page is an excellent patient resource. Also reach us on the FWC facebook page which is supported by the #SGO com…
Amanda Nickles Fader, MD @amandanfader
@coffeemommy @ShannonWestin Talk to your state and local representatives. Many telemedicine regulations are state-specific. Would be great to continue using post-COVID-19. #gyncsm #sgocovid19
Alexa Jett 🦋 @ohhiialexa
@MIShouldTalk You bring up such a good point, and while it’s uncomfortable, it needed to be said. Active treatment vs survivorship both have their different challenges, and it’s important to remember these perspectives. Stage 4 also doesn’t have the voice it needs #GYNCSM
Erica Bednar @EMBOSU
Resources for coping with hereditary cancer in the midst of COVID-19 #gcchat #gencsm #HereditaryCancer
Dee Sparacio @womenofteal
@BPothuri And we learned to do video conferencing/ Skype / Zoom for support groups too! #gyncsm
Christina Lizaso @btrfly12
Here's a piece by one of the original #gyncsm healthcare mods: @DrMarkham- What People With Cancer Need to Know https://t.co/jtoMx7OSxJ
Stacey Tinianov @coffeemommy
@btrfly12 "Glad top minds are working hard on guidelines." Indeed. And glad #gyncsm is working hard to share relevant and timely information in a time of global crisis. 💗 Have to run but wonderful to "see" you all for a bit.
Amanda Crowell Itliong @MIShouldTalk
@amandanfader @ShannonWestin @SGO_org I’m saying I’m in agreement with the guidelines - glad they are posted! Saying Thanks! #gyncsm
Tanya Temkin @tanyaltee
At Kaiser Northern California we’ve been using telephone and video visits for years. It’s our “old normal!”
Shannon Westin @ShannonWestin
This is important! We are limited in #telehealth by regulations - we need legislators to learn from this issue and expand our ability to provide care across state lines #gyncsm
Christina Lizaso @btrfly12
RT @ohhiialexa: @MIShouldTalk You bring up such a good point, and while it’s uncomfortable, it needed to be said. Active treatment vs survi…
Joshua Kesterson @KestersonJoshua
@coffeemommy @btrfly12 #gyncsm Stacey, thanks for hanging out. Stay safe.
Sarah Temkin @temkins
RT @ShannonWestin: This is important! We are limited in #telehealth by regulations - we need legislators to learn from this issue and expa…
Amanda Nickles Fader, MD @amandanfader
Word, @ShannonWestin! #gyncsm
Alexa Jett 🦋 @ohhiialexa
@temkins Yes! My internet situation is less than ideal by far. I live in East Texas, not as rural as other areas here, but internet is a huge problem! I had to use my phone as a mobile hotspot for a video visit. #GYNCSM
Annie Ellis @Stigetta
@beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal You can connect with a patient mentor through OCRA's Woman to Woman Program. https://t.co/VGuNUoEG7v #gyncsm
Dee Sparacio @womenofteal
RT @BPothuri: Please understand that you all are very important and we are making the best decisions we can during this time of greater inf…
Joshua Kesterson @KestersonJoshua
@ShannonWestin #gyncsm Agree. Lack of Internet access should not negatively impact care/access to care.
Amanda Crowell Itliong @MIShouldTalk
@KestersonJoshua Thanks! I know it’s an impossible decision for my doc too and all of you are making impossible decisions! #gyncsm
Shannon Westin @ShannonWestin
RT @Stigetta: @beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal You can connect with a patient mentor through OCRA's Woman to…
Dee Sparacio @womenofteal
RT @btrfly12: There are already studies trying to tackle the big questions: How long is it safe to delay gynecologic cancer surgery? By @…
Erica Bednar @EMBOSU
@temkins Language differences are also a challenge; interpreting clinic appointments is often challenging baseline, still need to find more #equitable solutions in order for telemedicine to not create/increase disparities imo #gyncsm
Dee Sparacio @womenofteal
RT @amandanfader: @coffeemommy @ShannonWestin Talk to your state and local representatives. Many telemedicine regulations are state-specifi…
Sarah Temkin @temkins
RT @Stigetta: @beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal You can connect with a patient mentor through OCRA's Woman to…
Christina Lizaso @btrfly12
As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie Ellis via @Globeathon https://t.co/vNXx7qisIW Cervivor @IAmCervivor https://t.co/ggLbcx1FCi #gyncsm
Alexa Jett 🦋 @ohhiialexa
@ShannonWestin What do advocates need to know about this? #GYNCSM
Dee Sparacio @womenofteal
RT @ohhiialexa: @MIShouldTalk You bring up such a good point, and while it’s uncomfortable, it needed to be said. Active treatment vs survi…
liz swisher @SwisherLiz
RT @ShannonWestin: This is important! We are limited in #telehealth by regulations - we need legislators to learn from this issue and expa…
Amanda Nickles Fader, MD @amandanfader
This is an amazing program, @Stigetta! Many hospitals across U.S. have Woman 2 Woman program. #gyncsm
Christina Lizaso @btrfly12
RT @Stigetta: @beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal You can connect with a patient mentor through OCRA's Woman to…
Shannon Westin @ShannonWestin
RT @btrfly12: As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie…
DaveisAliveAndKickn @AliveAndKicknDD
RT @EMBOSU: @temkins Language differences are also a challenge; interpreting clinic appointments is often challenging baseline, still need…
Dee Sparacio @womenofteal
@coffeemommy @btrfly12 Take care -Stay safe Stacey. #gyncsm
Alexa Jett 🦋 @ohhiialexa
@MIShouldTalk @KestersonJoshua Truth, all the way! #GYNCSM
Dee Sparacio @womenofteal
@ShannonWestin I didn't realize that -I guess insurance payment impacts the use too. #gyncsm
EcanaAdrienne @AdrienneEcana
RT @Stigetta: @beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal You can connect with a patient mentor through OCRA's Woman to…
Shannon Westin @ShannonWestin
@ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate laws to allow #telehealth #gyncsm
Sarah Temkin @temkins
I hope I shared this correctly. One of my patients sent this to me last week. It's incredible what we can innovate during difficult times. #gyncsm #COVID https://t.co/Hco8vDbElG
DaveisAliveAndKickn @AliveAndKicknDD
RT @amandanfader: This is an amazing program, @Stigetta! Many hospitals across U.S. have Woman 2 Woman program. #gyncsm
Shannon Westin @ShannonWestin
@womenofteal Payment - but they can also take your license , which is a greater issues for most MDs and providers #gyncsm
Alexa Jett 🦋 @ohhiialexa
RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la…
DaveisAliveAndKickn @AliveAndKicknDD
RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la…
Sarah Temkin @temkins
RT @EMBOSU: @temkins Language differences are also a challenge; interpreting clinic appointments is often challenging baseline, still need…
Dee Sparacio @womenofteal
What brought me hope was this Via @KDRichardson924 Karen J. Williams PhD from @KarmaOncology shared this graphic on LinkedIn. It is good to see the research into treatments and vaccines taking place. #gyncsm https://t.co/MZqxWivUF4
Jessica Foglesong MD 👩🏻‍⚕️ @foglesong_md
RT @btrfly12: As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie…
Bhavana Pothuri @BPothuri
RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la…
EcanaAdrienne @AdrienneEcana
RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la…
Dee Sparacio @womenofteal
RT @Stigetta: @beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal You can connect with a patient mentor through OCRA's Woman to…
Tanya Temkin @tanyaltee
And these categories are so fluid. Many of us move in and out as we have recurrences and remissions. #gyncsm
Christina Lizaso @btrfly12
I guess part of my self-care is being a resource gather-er... #gyncsm
Amanda Nickles Fader, MD @amandanfader
Si, por supuesto! I agree wholeheartedly. Interpreter services at many urban hospitals across U.S. are ramping up to accommodate these patient needs. #gyncsm
Christina Lizaso @btrfly12
Practicing self-care during the Time of Coronavirus @JBBC for @power4patients https://t.co/26oqPisk9I #gyncsm #patientchat
Sarah Temkin @temkins
RT @btrfly12: I guess part of my self-care is being a resource gather-er... #gyncsm
KD Richardson @KDRichardson924
#gyncsm As we hear more about the rates of infection/deaths of African Americans with COVID19, I worry we will continue to be excluded from clinical trials due to existing comorbidities.
Dee Sparacio @womenofteal
@EMBOSU @temkins @CancerDotNet has Coronavirus info https://t.co/nNPJLHvFSo Some resources are in spanish. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie…
Christina Lizaso @btrfly12
RT @womenofteal: @EMBOSU @temkins @CancerDotNet has Coronavirus info https://t.co/nNPJLHvFSo Some resources are in spanish. #gyncsm
Christina Lizaso @btrfly12
RT @KDRichardson924: #gyncsm As we hear more about the rates of infection/deaths of African Americans with COVID19, I worry we will continu…
Inspire @teaminspire
RT @womenofteal: @EMBOSU @temkins @CancerDotNet has Coronavirus info https://t.co/nNPJLHvFSo Some resources are in spanish. #gyncsm
Dee Sparacio @womenofteal
Another resource from Livestrong @livestrong Tips and Tools for living with Cancer during Covid-19 https://t.co/tTivEfKSAP #gyncsm
Christina Lizaso @btrfly12
RT @tanyaltee: And these categories are so fluid. Many of us move in and out as we have recurrences and remissions. #gyncsm https://t.co/8z…
Alexa Jett 🦋 @ohhiialexa
@ShannonWestin @womenofteal Not okay! Legislation needs to get with the times. This should be a huge lesson that telehealth can, and indeed DOES work. #patientadvocates, we have to go to battle on this one! #GYNCSM
Emma Rossi @RobinsonRossiGO
@btrfly12 Not only cancer surgery being delayed, but also the procedures that diagnose cancers are being delayed. Very hard time for patients. #gyncsm
Inspire @teaminspire
RT @btrfly12: Practicing self-care during the Time of Coronavirus @JBBC for @power4patients https://t.co/26oqPisk9I #gyncsm #patientchat
Dee Sparacio @womenofteal
RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la…
Sarah Temkin @temkins
RT @btrfly12: There are already studies trying to tackle the big questions: How long is it safe to delay gynecologic cancer surgery? By @…
Sarah Temkin @temkins
RT @RobinsonRossiGO: @btrfly12 Not only cancer surgery being delayed, but also the procedures that diagnose cancers are being delayed. Very…
Annie Ellis @Stigetta
@beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal Most hospitals have a patient advocates to help patients navigate issues #gyncsm
DaveisAliveAndKickn @AliveAndKicknDD
RT @womenofteal: @EMBOSU @temkins @CancerDotNet has Coronavirus info https://t.co/nNPJLHvFSo Some resources are in spanish. #gyncsm
Dee Sparacio @womenofteal
RT @temkins: I hope I shared this correctly. One of my patients sent this to me last week. It's incredible what we can innovate during diff…
Ali Saiz, MD MS @AllisonSaizMD
RT @btrfly12: As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie…
Shannon Westin @ShannonWestin
@ohhiialexa @womenofteal Please and thank you!!! We will be right there with you! #gyncsm
Christina Lizaso @btrfly12
on the International side #gyncsm International Gynecologic Cancer Society @IGCSociety https://t.co/J5DCTY6Ym0
Ali Saiz, MD MS @AllisonSaizMD
RT @ShannonWestin: This is important! We are limited in #telehealth by regulations - we need legislators to learn from this issue and expa…
Shannon Westin @ShannonWestin
RT @womenofteal: Another resource from Livestrong @livestrong Tips and Tools for living with Cancer during Covid-19 https://t.co/tTivEfKSA…
Alexa Jett 🦋 @ohhiialexa
@tanyaltee Oh, definitely! Cancer life is not black and white like movies would like to portray. We need all voices for all stages! #GYNCSM
Shannon Westin @ShannonWestin
RT @RobinsonRossiGO: @btrfly12 Not only cancer surgery being delayed, but also the procedures that diagnose cancers are being delayed. Very…
Tanya Temkin @tanyaltee
Tomorrow I have to go to the Kaiser pharmacy to pick up my PARP. They won’t send it by mail. I’m working in that. #gyncsm
Debra Hallisey @advocatemomdad
RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la…
Christina Lizaso @btrfly12
Here's what the FDA has to say so far re: clinical trials during COVID 19 https://t.co/zWot9zR2va but feel like this will just keep changing #gyncsm
Bhavana Pothuri @BPothuri
Please spread the word to stay home to #flattenthecurve #GYNcsm #SGOCOVID19
Dee Sparacio @womenofteal
@beachbound624 @Stigetta @ShannonWestin @SGO_org @GYNCancer Try your local cancer support community such as @CancerSupportNJ . They have an Decisions program to help with treatment decisions #gyncsm
Shannon Westin @ShannonWestin
Exactly - I worry that we will see patients diagnosed at higher stages because we had to delay diagnostic procedures #gyncsm
EcanaAdrienne @AdrienneEcana
@KDRichardson924 #gyncsm This is a genuine concern and a conversation that deserves more than the 2min blurb on the news each night!!
Shannon Westin @ShannonWestin
RT @btrfly12: on the International side #gyncsm International Gynecologic Cancer Society @IGCSociety https://t.co/J5DCTY6Ym0
Emma Rossi @RobinsonRossiGO
RT @womenofteal: Another resource from Livestrong @livestrong Tips and Tools for living with Cancer during Covid-19 https://t.co/tTivEfKSA…
Ali Saiz, MD MS @AllisonSaizMD
RT @BPothuri: Please spread the word to stay home to #flattenthecurve #GYNcsm #SGOCOVID19
Dee Sparacio @womenofteal
RT @btrfly12: Practicing self-care during the Time of Coronavirus @JBBC for @power4patients https://t.co/26oqPisk9I #gyncsm #patientchat
Sarah Temkin @temkins
@KDRichardson924 There are many many people working to make sure this doesn't happen. #clinicaltrials are the key to innovation in oncology and enrolling a representative patient population is good science. #gyncsm.
Amanda Nickles Fader, MD @amandanfader
This is huge and we hear you loud and clear. We absolutely must address the health disparities that exist in the U.S. related to COVID-19 and other health care conditions. Research studies are ongoing. #gyncsm
Dee Sparacio @womenofteal
RT @KDRichardson924: #gyncsm As we hear more about the rates of infection/deaths of African Americans with COVID19, I worry we will continu…
Shannon Westin @ShannonWestin
This is an excellent document with #COVID19 expertise from around the world! @pedroramirezMD @Frumovitz #gyncsm
Dee Sparacio @womenofteal
RT @ohhiialexa: @ShannonWestin @womenofteal Not okay! Legislation needs to get with the times. This should be a huge lesson that telehealth…
Joshua Kesterson @KestersonJoshua
@KDRichardson924 #gyncsm KD, I hope this COVID crisis draws attention to the disparities in outcomes for African-Americans as well as based on economic status, geographic location, etc. and serves as a call for equality for all
EcanaAdrienne @AdrienneEcana
@KDRichardson924 #gyncsm Is of course why high density cities like New York and New Orleans have been hit so hard.
Dee Sparacio @womenofteal
RT @btrfly12: on the International side #gyncsm International Gynecologic Cancer Society @IGCSociety https://t.co/J5DCTY6Ym0
GYN Cancer | #GYNCSM @gyncsm
Well we certainly didn't run out of things to talk about on our Covid19 open mic. We hope you were able to make and/or strengthen connections and learn some things. We like to close out chats by sharing TIL: tweet standing for "Today I Learned"... #gyncsm
Alexa Jett 🦋 @ohhiialexa
@AdrienneEcana @KDRichardson924 100% with you both on this!! Deeply concerned and it has to be discussed/researched. The death and infection rate is ALARMING! #GYNCSM
Dee Sparacio @womenofteal
RT @btrfly12: Here's what the FDA has to say so far re: clinical trials during COVID 19 https://t.co/zWot9zR2va but feel like this will j…
Bhavana Pothuri @BPothuri
RT @KestersonJoshua: @KDRichardson924 #gyncsm KD, I hope this COVID crisis draws attention to the disparities in outcomes for African-Ameri…
Sarah Temkin @temkins
RT @gyncsm: Well we certainly didn't run out of things to talk about on our Covid19 open mic. We hope you were able to make and/or strength…
Dee Sparacio @womenofteal
RT @BPothuri: Please spread the word to stay home to #flattenthecurve #GYNcsm #SGOCOVID19
Shannon Westin @ShannonWestin
RT @KestersonJoshua: @KDRichardson924 #gyncsm KD, I hope this COVID crisis draws attention to the disparities in outcomes for African-Ameri…
Shannon Westin @ShannonWestin
RT @gyncsm: Well we certainly didn't run out of things to talk about on our Covid19 open mic. We hope you were able to make and/or strength…
Annie Ellis @Stigetta
RT @KDRichardson924: #gyncsm As we hear more about the rates of infection/deaths of African Americans with COVID19, I worry we will continu…
Dee Sparacio @womenofteal
@AdrienneEcana @KDRichardson924 Agree 100% . #gyncsm
Shannon Westin @ShannonWestin
@tanyaltee I am sorry they can't make that happen - we are working on these processes and have been able to mail trial drugs out of state! #gyncsm
Dee Sparacio @womenofteal
RT @amandanfader: This is huge and we hear you loud and clear. We absolutely must address the health disparities that exist in the U.S. re…
Eileen McMahon (she/her) @eileenmcmahonNP
Virtual tumour board #covid19 #gynonc
GYN Cancer | #GYNCSM @gyncsm
Special thanks again to @SGO_org for inviting the chairs of SGO’s COVID-19 Task Force to join. Drs. Bhavana Pothuri @BPothuri, Amanda Nickles Fader @amandanfader, and Joshua Kesterson @KestersonJoshua and patient advocate Annie Ellis @stigetta #gyncsm
Dee Sparacio @womenofteal
RT @KestersonJoshua: @KDRichardson924 #gyncsm KD, I hope this COVID crisis draws attention to the disparities in outcomes for African-Ameri…
Annie Ellis @Stigetta
RT @KestersonJoshua: @KDRichardson924 #gyncsm KD, I hope this COVID crisis draws attention to the disparities in outcomes for African-Ameri…
Annie Ellis @Stigetta
RT @amandanfader: This is huge and we hear you loud and clear. We absolutely must address the health disparities that exist in the U.S. re…
Dee Sparacio @womenofteal
RT @gyncsm: Well we certainly didn't run out of things to talk about on our Covid19 open mic. We hope you were able to make and/or strength…
Shannon Westin @ShannonWestin
RT @gyncsm: Special thanks again to @SGO_org for inviting the chairs of SGO’s COVID-19 Task Force to join. Drs. Bhavana Pothuri @BPothuri,…
EcanaAdrienne @AdrienneEcana
@KDRichardson924 #gyncsm In light of the high mortality rates, the financial health disparities will also become a factor as they will be faced with paying for costs of burial for those without insurance.
Dee Sparacio @womenofteal
RT @gyncsm: Special thanks again to @SGO_org for inviting the chairs of SGO’s COVID-19 Task Force to join. Drs. Bhavana Pothuri @BPothuri,…
Inspire @teaminspire
RT @btrfly12: on the International side #gyncsm International Gynecologic Cancer Society @IGCSociety https://t.co/J5DCTY6Ym0
Annie Ellis @Stigetta
RT @AdrienneEcana: @KDRichardson924 #gyncsm In light of the high mortality rates, the financial health disparities will also become a facto…
Chezilme 🏳️‍🌈🇨🇦🇨🇵 @chezilme
Tonight #gyncsm TweetChat felt like the first day at school where I made a lot of new friends 🤗 I've never liked/bookmarked so many tweets in so little time! Thanks all! https://t.co/574yYELaXG
Dee Sparacio @womenofteal
Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm
Dee Sparacio @womenofteal
RT @AdrienneEcana: @KDRichardson924 #gyncsm In light of the high mortality rates, the financial health disparities will also become a facto…
Christina Lizaso @btrfly12
RT @ShannonWestin: Exactly - I worry that we will see patients diagnosed at higher stages because we had to delay diagnostic procedures #gy
Steve Smith @SteveSmithPlans
RT @KDRichardson924: #gyncsm As we hear more about the rates of infection/deaths of African Americans with COVID19, I worry we will continu…
Annie Ellis @Stigetta
RT @gyncsm: Special thanks again to @SGO_org for inviting the chairs of SGO’s COVID-19 Task Force to join. Drs. Bhavana Pothuri @BPothuri,…
Mohammad Gilani @mgilani21
RT @ShannonWestin: Exactly - I worry that we will see patients diagnosed at higher stages because we had to delay diagnostic procedures #gy
Alexa Jett 🦋 @ohhiialexa
@ShannonWestin I’ve thought about this a lot, and it does worry me. I worry about AYA age groups who were due for a yearly check up and now it’s delayed. While most are fine, I think about the ones who might have cancer and their early symptoms are being missed. #GYNCSM
Annie Ellis @Stigetta
TY @BPothuri @AmandaNFader @KetersonJoshua @SGO_org COVID-19 Task Force @GYNCancer’s for all you are doing for gyn patients during this crisis! #gyncsm
Amanda Nickles Fader, MD @amandanfader
Thank you for the fantastic discussion! Stay safe, stay at home, and wash your hands! #gyncsm
EcanaAdrienne @AdrienneEcana
@womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm This time just goes by way too fast!!
Amanda Crowell Itliong @MIShouldTalk
@gyncsm @SGO_org @BPothuri @amandanfader @KestersonJoshua @Stigetta Go Team! Keep it up! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Thanks to everyone who joined along and shared. Save the date for our next #gyncsm chat: Wed May 13 9pmET discussing Side effects of Surgery/Hysterectomy. Wishing wellness and safety for all.
Emma Rossi @RobinsonRossiGO
@AdrienneEcana @KDRichardson924 And no, we shouldn’t wait to address this when it’s all over, as some suggest. We should tackle it now. We should recognize there are certain communities that are in greater need for resources, testing, access now. Should not accept these worse outcomes are inevitable. #gyncsm
Annie Ellis @Stigetta
RT @womenofteal: @beachbound624 @Stigetta @ShannonWestin @SGO_org @GYNCancer Try your local cancer support community such as @CancerSuppor
Tanya Temkin @tanyaltee
Maybe I can help change this policy. Ive already been contacted by Kaiser’s member services and my concern has been “Escalated” #gyncsm
Dee Sparacio @womenofteal
Appreciate the information shared by @BPothuri , @KestersonJoshua @amandanfader . We hope you will stop by one of our future #gyncsm chats you are always welcome!
Erica Bednar @EMBOSU
TIL that the #gyncsm community is navigating similar fears, uncertainty, ever-changing guidelines, and new barriers to healthcare acess/delivery -- not alone, but together. #gyncsm Stay safe, friends!
Shannon Westin @ShannonWestin
@womenofteal @btrfly12 @temkins @journeycancer @DrBeckerSchutte Grateful for Dee and Christina!!! #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Thanks to everyone who joined along and shared. Save the date for our next #gyncsm chat: Wed May 13 9pmET discussing Side eff…
Bhavana Pothuri @BPothuri
Thanks for having us. Please know the #SGOCOVID19 TF is here to continually work to improve the care of our patients during this challenging time. Please know we are all here for you. #GYNcsm
Amanda Crowell Itliong @MIShouldTalk
@Stigetta @BPothuri @amandanfader @SGO_org @GYNCancer Thanks for repping us Annie! #gyncsm
Joshua Kesterson @KestersonJoshua
@womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm has it been an hour already? sign of good time. flew by. thanks for allowing us into your tweetchat. honored
Alexa Jett 🦋 @ohhiialexa
@chezilme Awwwww! That’s so nice! 🥰❤️ #GYNCSM
Shannon Westin @ShannonWestin
RT @BPothuri: Thanks for having us. Please know the #SGOCOVID19 TF is here to continually work to improve the care of our patients during t…
Annie Ellis @Stigetta
RT @BPothuri: Thanks for having us. Please know the #SGOCOVID19 TF is here to continually work to improve the care of our patients during t…
Annie Ellis @Stigetta
RT @KestersonJoshua: @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm has it been an hour already? si…
Alexa Jett 🦋 @ohhiialexa
@tanyaltee You go for it!!! #GYNCSM
Steve Smith @SteveSmithPlans
RT @amandanfader: Si, por supuesto! I agree wholeheartedly. Interpreter services at many urban hospitals across U.S. are ramping up to acco…
Dee Sparacio @womenofteal
@AdrienneEcana @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte It sure did fly by. Glad to spend time with some many interested in improving the gy cancer patient experience around COVID-19 and beyond #gyncsm
Shannon Westin @ShannonWestin
Thanks to everyone for your contributions tonight! Please stay safe and stay home if you can!! xoxo #gyncsm
Cire @tragure
#gyncsm
Dee Sparacio @womenofteal
RT @RobinsonRossiGO: @AdrienneEcana @KDRichardson924 And no, we shouldn’t wait to address this when it’s all over, as some suggest. We shou…
Alexa Jett 🦋 @ohhiialexa
RT @EMBOSU: TIL that the #gyncsm community is navigating similar fears, uncertainty, ever-changing guidelines, and new barriers to healthca…
Christina Lizaso @btrfly12
It was so great to see so many new faces. Those doing a tweet chat for their first time - you did great! Hope to tweet along with you again. #gyncsm
Teresa Hagan Thomas, PhD, RN @TLHagan
RT @womenofteal: Another resource from Livestrong @livestrong Tips and Tools for living with Cancer during Covid-19 https://t.co/tTivEfKSA…
Dee Sparacio @womenofteal
RT @EMBOSU: TIL that the #gyncsm community is navigating similar fears, uncertainty, ever-changing guidelines, and new barriers to healthca…
Vaidehi Mujumdar, MD @VeeMuj
RT @amandanfader: This is huge and we hear you loud and clear. We absolutely must address the health disparities that exist in the U.S. re…
Teresa Hagan Thomas, PhD, RN @TLHagan
RT @btrfly12: Practicing self-care during the Time of Coronavirus @JBBC for @power4patients https://t.co/26oqPisk9I #gyncsm #patientchat
Shannon Westin @ShannonWestin
RT @womenofteal: Appreciate the information shared by @BPothuri , @KestersonJoshua @amandanfader . We hope you will stop by one of our futu…
Shannon Westin @ShannonWestin
RT @RobinsonRossiGO: @AdrienneEcana @KDRichardson924 And no, we shouldn’t wait to address this when it’s all over, as some suggest. We shou…
Dee Sparacio @womenofteal
RT @BPothuri: Thanks for having us. Please know the #SGOCOVID19 TF is here to continually work to improve the care of our patients during t…
Sarah Temkin @temkins
RT @btrfly12: It was so great to see so many new faces. Those doing a tweet chat for their first time - you did great! Hope to tweet along…
Christina Lizaso @btrfly12
RT @BPothuri: Thanks for having us. Please know the #SGOCOVID19 TF is here to continually work to improve the care of our patients during t…
Shannon Westin @ShannonWestin
RT @gyncsm: Thanks to everyone who joined along and shared. Save the date for our next #gyncsm chat: Wed May 13 9pmET discussing Side eff…
Sarah Temkin @temkins
RT @ShannonWestin: Thanks to everyone for your contributions tonight! Please stay safe and stay home if you can!! xoxo #gyncsm
Christina Lizaso @btrfly12
RT @EMBOSU: TIL that the #gyncsm community is navigating similar fears, uncertainty, ever-changing guidelines, and new barriers to healthca…
Dee Sparacio @womenofteal
RT @btrfly12: It was so great to see so many new faces. Those doing a tweet chat for their first time - you did great! Hope to tweet along…
Joshua Kesterson @KestersonJoshua
@btrfly12 #gyncsm Til next time? @BPothuri , @amandanfader
Dee Sparacio @womenofteal
Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm
Sarah Temkin @temkins
RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm
Dee Sparacio @womenofteal
Till next month - Stay well Teal Sisters, healthcare providers and caregivers. #gyncsm
Tanya Temkin @tanyaltee
Well thanks to all for the resources and motivation! See y’all on social media. And happy Passover to all who celebrate. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. Check our blog https://t.co/oAfi7Me49e for the chat summary with link to the full transcript and the resources shared.
Sarah Temkin @temkins
RT @tanyaltee: Well thanks to all for the resources and motivation! See y’all on social media. And happy Passover to all who celebrate. #gy
Dee Sparacio @womenofteal
Thanks to my Teal sister and friend Annie Ellis @stigetta for all her great advocacy work and for joining us tonight. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. Check our b…
Dee Sparacio @womenofteal
RT @tanyaltee: Well thanks to all for the resources and motivation! See y’all on social media. And happy Passover to all who celebrate. #gy
Dee Sparacio @womenofteal
@KestersonJoshua @btrfly12 @BPothuri @amandanfader Did great ! Thanks again. #gyncsm
Dee Sparacio @womenofteal
My fingers are very tired right now. And that is a good thing. Thanks to all who joined in and to @btrfly12 for being an awesome chat/ community partner . #gyncsm
Inspire @teaminspire
RT @womenofteal: Another resource: @CancerAdvocacy Coronavirus and Cancer Resources for Survivors https://t.co/RctGtp35fV #gyncsm
Bhavana Pothuri @BPothuri
RT @KestersonJoshua: Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID…
IamCervivor @IamCervivor
RT @btrfly12: As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie…
Dee Sparacio @womenofteal
@Mimiinmendon Thanks for joining us tonight. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
RT @womenofteal: Thanks to my Teal sister and friend Annie Ellis @stigetta for all her great advocacy work and for joining us tonight. #gy
Hope4YAWC @Hope4YAWC
RT @EK_Drake: ✨New look, same chat! ✨ Special #AYACSM #TweetChat happening next Tuesday! @LacunaLoft will be moderating a discussion arou…
#GynCSM content from Twitter.