#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Inspire @InspireIsHealth RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Shannon Westin, MD, MPH, FASCO @ShannonWestin Hi friends! I am a Gyn Onc at @MDAndersonNews - happy to be here with you all to discuss #COVID19 and #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
 | Sarah Temkin @temkins RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our men… |
| Inspire @InspireIsHealth @gyncsm Hello to the #gyncsm community, John Novack here from Inspire. |
| GYN Cancer | #GYNCSM @gyncsm We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
| Dee Sparacio @womenofteal @ShannonWestin @MDAndersonNews Hi Shannon! Hope you and your family are well. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our men… |
| @KDRichardson924 @gyncsm @AdrienneEcana #gyncsm Good Evening! Kimberly from Chicago. Looking forward to this hour of discussion | |
 | Annie Ellis @Stigetta Annie Ellis 15-yr ovca survivor/research advocate. 2 recurrences now 12 yrs NED. I volunteer w/ @ocrahope and @SHAREing. Patient advocate member of @SGO_org COVID-19 Task Force #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. |
| @AliveAndKicknDD RT @ShannonWestin: Let's chat about #COVID-19 - we will have great guests from the @SGO_org task force! Lot's to learn #gyncsm | |
| @AdrienneEcana @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm Thank you to our Moderators for creating this space for us | |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @KestersonJoshua @SGO_org @amandanfader @BPothuri We've got you covered!! #gyncsm |
| Dee Sparacio @womenofteal @teaminspire @gyncsm Hi John Welcome . #gyncsm |
 | Bhavana Pothuri @BPothuri I am Bhavana Pothuri a #gynonc @NYULangonehealth in #NYC. I am the Vice chair of the Clinical Practice Committee for SGO and am a co-chair of the COVID-19 TF We are excited to tweetchat. Our tweets are not a substitute for your treating physician. #GYNcsm #COVID19 #SGOCOVID19 |
| Dee Sparacio @womenofteal RT @gyncsm: We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Debra Hallisey @advocatemomdad Hi Deb here from Advocate for Mom and Dad. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @womenofteal @MDAndersonNews Hi Dee! We are making it! Hope you are doing okay!! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Please continue intro's and welcomes while @womenofteal and I start in w/ the "ground rules" :) and tips! #gyncsm |
| Dee Sparacio @womenofteal @KDRichardson924 @gyncsm @AdrienneEcana Hi Kim So happy you are here tonight! #gyncsm |
 | Joshua Kesterson @KestersonJoshua Josh Kesterson. Gyn Onc @ Penn State Hershey Med Center. Hershey, Pennsylvania. Honored to be member of SGO COVID-19 Task Force and on this Tweet Chat #gyncsm |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer care. I’ll be moderating as @gyncsm today. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @BPothuri Welcome to #gyncsm Dr. Pothuri!! #gyncsm |
 | Alexa Jett 🦋 @ohhiialexa Hey #GYNCSM! I’m so sorry that we are all going through trying times right now, but I am glad we are together! I’m Alexa! ❤️ Thyroid cancer survivor, blogger, and #AYACancer advocate. So thrilled that it’s #NAYACAW (National AYA Cancer Awareness Week)! |
| @AliveAndKicknDD Dave Dubin, 3x Lynch Syndrome survivor, above average soccer coach #gyncsm | |
 | Amanda Nickles Fader, MD @amandanfader Good evening! I’m Amanda Fader, a GYN oncologist at Johns Hopkins Hospital in Baltimore, MD. It’s a pleasure to be with all of you to talk about GYN cancers and COVID-19 issues. #gyncsm #sgocovid19 #covid19 @HopkinsMedicine |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @KDRichardson924 @gyncsm @AdrienneEcana Welcome Kimberly!! #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @Stigetta @ocrahope @SHAREing @SGO_org Hi Annie!!! #gyncsm |
| Dee Sparacio @womenofteal @Stigetta @ocrahope @SHAREing @SGO_org Hi Annie - Thanks for your input on this very important chat #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are… |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| @AdrienneEcana @gyncsm #gyncsm Adrienne of Atlanta, Endo Cancer Survivor, Empath Respiratory Therapist | |
| Alexa Jett 🦋 @ohhiialexa @AdrienneEcana @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Aren’t they just the best!!? #GYNCSM |
| Bhavana Pothuri @BPothuri so excited to participate ! #GYNcsm #COVID19 #SGOCOVID19 |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @KestersonJoshua Welcome Josh! #gyncsm |
| Dee Sparacio @womenofteal @BPothuri Thanks again for taking the time to join us tonight. #gyncsm |
 | Mimi @Mimiinmendon @gyncsm #gyncsm |
| Dee Sparacio @womenofteal Dee here! Diagnosed #ovca Stage3B 2005, recurrence 2008, OC research advocate, blogger & co-moderator #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @amandanfader @HopkinsMedicine Welcome Amanda!! #gyncsm |
 | Erica Bednar @EMBOSU Hi everyone! I'm Erica, genetic counselor at MD Anderson -- happy to chat with you all this evening! #gyncsm |
| Dee Sparacio @womenofteal @advocatemomdad Hi Deb - Hope you are doing well. We'll have to plan a lunch again after this is all over. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Please continue intro's and welcomes while @womenofteal and I start in w/ the "ground rules" :) and tips! #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @KDRichardson924 @gyncsm @AdrienneEcana So good to see you here, Kimberly!! #GYNCSM |
| Dee Sparacio @womenofteal @KestersonJoshua Hi John Thanks again for joining us #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
| @AdrienneEcana @BPothuri #gyncsm Sorry about SGO this year, was looking forward to it!! | |
| Dee Sparacio @womenofteal @ohhiialexa Glad you are here too #gyncsm |
| Dee Sparacio @womenofteal @AliveAndKicknDD Waving hi #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @EMBOSU Great to "see" you Erica! #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @womenofteal Thank you, Dee! #GYNCSM |
| Dee Sparacio @womenofteal @amandanfader @HopkinsMedicine Hi Amanda Thanks for taking the time to join us #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @AliveAndKicknDD Hey there Dave!!! #gyncsm |
 | Michele Rhee @michelerhee @gyncsm Hi! Michele from Boston joining in! #gyncsm https://t.co/OWM6NR8LNH |
| Amanda Nickles Fader, MD @amandanfader @womenofteal @HopkinsMedicine Thank you for having me! #gyncsm |
| @AliveAndKicknDD @womenofteal Thanks for invite. Happy to be here | |
| Dee Sparacio @womenofteal @ohhiialexa @AdrienneEcana @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Thanks but just so you know Now you are making me blush. |
| Dee Sparacio @womenofteal [REDACTED USER] @gyncsm Hi Cecile - Thanks for joining us #gyncsm |
 | Chrysalis💙📖🎷🪮💃🏿🌻🦂 @JustStop0691 @gyncsm Alrac from NC. 8 months remission from endo cancer. #gyncsm |
| Annie Ellis @Stigetta @ShannonWestin @ocrahope @SHAREing @SGO_org Howdy @ShannonWestin |
| Dee Sparacio @womenofteal @EMBOSU Erica - glad you're here #gyncsm |
| @AliveAndKicknDD @ShannonWestin Seems like forever since we saw each other in houston | |
| GYN Cancer | #GYNCSM @gyncsm Welcome to all those joining. We also welcome all those “listening in”. Be sure to tweet #gyncsm so we know you are here. You can always tweet, DM or email us with questions/comments after the chat is over. |
| Amanda Nickles Fader, MD @amandanfader @JustStop0691 @gyncsm That is great to hear! #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @AliveAndKicknDD Agree - it's been years, right?? #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @michelerhee @gyncsm Wooo! It’s the #AYACSM after party now! #GYNCSM https://t.co/vctvWAkdnm |
| Dee Sparacio @womenofteal @michelerhee @gyncsm Hi Michele - Glad to see you here tonight and for always sharing info about the chat. #gyncsm |
| Dee Sparacio @womenofteal @JustStop0691 @gyncsm Welcome! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Welcome to all those joining. We also welcome all those “listening in”. Be sure to tweet #gyncsm so we know you are here. Y… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @JustStop0691 @gyncsm Welcome and congrats!! #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @JustStop0691 @gyncsm CONGRATULATIONS!! #GYNCSM https://t.co/Ux5FbQcMK6 |
| Michele Rhee @michelerhee @ohhiialexa @gyncsm YASSSS!!!! #AYACSM #GYNCSM https://t.co/uG6mIaetpK |
| GYN Cancer | #GYNCSM @gyncsm Tonight #gyncsm is holding an Open Mic to talk about COVID-19 and its impact on those impacted by gyn cancers. And we are so grateful to @SGO_org for inviting their Covid-19 Task Force along. |
| Erica Bednar @EMBOSU RT @gyncsm: Tonight #gyncsm is holding an Open Mic to talk about COVID-19 and its impact on those impacted by gyn cancers. And we are so… |
| Sarah Temkin @temkins RT @gyncsm: Welcome to all those joining. We also welcome all those “listening in”. Be sure to tweet #gyncsm so we know you are here. Y… |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Messages to exchange email addresses/personal info #gyncsm |
| @AliveAndKicknDD @ShannonWestin Yeah. The living with lynch video Microsite went live last month. | |
| Michele Rhee @michelerhee @womenofteal @gyncsm Thanks, Dee! Thank you for always being so supportive & welcoming! #gyncsm https://t.co/nudMgoZzvn |
| Dee Sparacio @womenofteal Special shout out to all who have tweeted during the past month with the #gyncsm hashtag and those who RT'd about this chat. |
| GYN Cancer | #GYNCSM @gyncsm Unlike our usual structured chat with set topic questions, we offering you, our participants, the “mic”. Feel free to ask questions, make comments or share how COVID-19 is impacting you. #gyncsm |
| Dee Sparacio @womenofteal @beachbound624 @Stigetta @ocrahope @SHAREing @SGO_org Hi Linda , Glad you are here tonight. #gyncsm |
| Bhavana Pothuri @BPothuri @SGO_org focus is delivering #gyncancer care in a safe manner and minimizing #COVID19 exposure @SGO_org #GYNcsm #COVID19 #SGOCOVID19 |
| Alexa Jett 🦋 @ohhiialexa @michelerhee @gyncsm Ain’t no party like a cancer tweet chat party because the cancer party don’t stop! #AYACSM #GYNCSM https://t.co/9MGqn6fCoe |
| Dee Sparacio @womenofteal RT @gyncsm: Unlike our usual structured chat with set topic questions, we offering you, our participants, the “mic”. Feel free to ask ques… |
| GYN Cancer | #GYNCSM @gyncsm Some potential questions for our discussion can be found on our #gyncsm blog page: https://t.co/JTLIoEEvtG |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: Unlike our usual structured chat with set topic questions, we offering you, our participants, the “mic”. Feel free to ask ques… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @beachbound624 @Stigetta @ocrahope @SHAREing @SGO_org Welcome! #gyncsm |
| Dee Sparacio @womenofteal For those of us already dealing with what cancer has done, is doing, and may do to our lives, it can be overwhelming to add to that a life-changing, life-challenging virus. #gyncsm |
| @AdrienneEcana @gyncsm @SGO_org #gyncsm Sister an Infustion Nurse just released from hospital after Covid related pneumonia | |
| GYN Cancer | #GYNCSM @gyncsm So wonderful to see so many new folks along. #gyncsm |
 | Amanda Crowell Itliong @MIShouldTalk Amanda here from Michigan. Living with ovarian cancer for the 4 th time in 11 years. In treatment now. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We are extremely grateful for the healthcare providers who are joining us for this chat. We know your time and energy are precious at all times, but are especially so now. #gyncsm |
| Dee Sparacio @womenofteal @AdrienneEcana @gyncsm @SGO_org That is such good news. #gyncsm |
| Dee Sparacio @womenofteal @MIShouldTalk Hi Amanda Happy to see you join us again. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm And without further ado... It's time for our open discussion on topics of your choice. Open Mic starts now! #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin This is important! We need to balance treating cancer with protecting our patients (and staff) from #COVID19 - We are really learning as we go. #gyncsm #SGOCOVID19 |
| Dee Sparacio @womenofteal RT @gyncsm: We are extremely grateful for the healthcare providers who are joining us for this chat. We know your time and energy are preci… |
| Inspire @InspireIsHealth RT @gyncsm: Unlike our usual structured chat with set topic questions, we offering you, our participants, the “mic”. Feel free to ask ques… |
| Amanda Nickles Fader, MD @amandanfader @gyncsm We are so happy to be here! #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk @womenofteal Good to see you too! #gyncsm |
| Dee Sparacio @womenofteal RT @ShannonWestin: This is important! We need to balance treating cancer with protecting our patients (and staff) from #COVID19 - We are r… |
| Dee Sparacio @womenofteal RT @gyncsm: And without further ado... It's time for our open discussion on topics of your choice. Open Mic starts now! #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm I'dlLove to hear how everyone is doing. What changes to your daily life/routines are you most struggling with? |
| Amanda Crowell Itliong @MIShouldTalk I’m having a really hard time deciding whether to go for my next blood test and then infusion during COVID-19 risk. I skipped one infusion already #gyncsm |
| Dee Sparacio @womenofteal @btrfly12 For me the current situation brought a flood of memories when my blood counts were low during treatment and I missed so many family events. #gyncsm |
| Annie Ellis @Stigetta @SGO_org COVID-19 Task Force has been working around the clock to develop strategies for doctors to continue to provide the very best care possible to their patients during these difficult times #gyncsm |
 | Emma Rossi @RobinsonRossiGO @gyncsm Emma Rossi gyn onc from North Carolina joining in. #gyncsm |
| Bhavana Pothuri @BPothuri In #NYC #cancer care has been impacted. We are doing our best to care for our patients safely in the epicenter. #GYNcsm #COVID19 #SGOCOVID19 |
| Christina Lizaso @btrfly12 @beachbound624 @gyncsm Just add #gyncsm to every tweet so the guests can see and respond. Thanks for joining. I think many have this concern: @beachbound624: "I am concerned about surgery delays in light of COVID 19" |
| Sarah Temkin @temkins Totally @ShannonWestin. Every surgical procedure potentially exposes the patient and a dozen HCW to #COVID19. #PPE is still an issue in many places. And access to testing has been an issue as well. |
| @AdrienneEcana @btrfly12 #gyncsm this adds another layer of stress to our already fragile medical history. | |
| Amanda Nickles Fader, MD @amandanfader @btrfly12 The human connection is so important and what I love about caring for patients. With social distancing, it is challenging. #gyncsm |
| Dee Sparacio @womenofteal RT @Stigetta: @SGO_org COVID-19 Task Force has been working around the clock to develop strategies for doctors to continue to provide the v… |
| Christina Lizaso @btrfly12 RT @womenofteal: For those of us already dealing with what cancer has done, is doing, and may do to our lives, it can be overwhelming to ad… |
| Bhavana Pothuri @BPothuri @SGO_org focus is delivering #gyncancer care in a safe manner and minimizing #COVID19 exposure #GYNcsm #COVID19 #SGOCOVID19 |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin I think the issue is that we don't know how long this is going to last - and we certainly want to keep you on track for your treatment. It's a difficulty decision #COVID19 #gyncsm |
| Dee Sparacio @womenofteal @RobinsonRossiGO @gyncsm Hi Emma Welcome to the #gyncsm chat. Thanks for joining in. |
| Amanda Nickles Fader, MD @amandanfader @btrfly12 But telemedicine allow us to keep very close tabs and communicate regularly with our cancer survivors. #gyncsm |
| Dee Sparacio @womenofteal RT @BPothuri: In #NYC #cancer care has been impacted. We are doing our best to care for our patients safely in the epicenter. #GYNcsm #COVI… |
| @AliveAndKicknDD @btrfly12 Many lynch syndrome patients get annual tests, especially colonoscopies, so having them put off by even a few months can be stressful #gyncsm | |
| Dee Sparacio @womenofteal RT @AdrienneEcana: @btrfly12 #gyncsm this adds another layer of stress to our already fragile medical history. |
| Sarah Temkin @temkins Totally @ShannonWestin. Every surgical procedure potentially exposes the patient and a dozen HCW to #COVID19. #PPE is still an issue in many places. And access to testing has been an issue as well. #gyncsm |
| Dee Sparacio @womenofteal RT @amandanfader: @btrfly12 The human connection is so important and what I love about caring for patients. With social distancing, it is c… |
| Christina Lizaso @btrfly12 RT @ShannonWestin: I think the issue is that we don't know how long this is going to last - and we certainly want to keep you on track for… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @temkins: Totally @ShannonWestin. Every surgical procedure potentially exposes the patient and a dozen HCW to #COVID19. #PPE is still a… |
| Amanda Crowell Itliong @MIShouldTalk @Stigetta @SGO_org Awesome! Like what? #gyncsm |
| Dee Sparacio @womenofteal RT @BPothuri: @SGO_org focus is delivering #gyncancer care in a safe manner and minimizing #COVID19 exposure #GYNcsm #COVID19 #SGOCOVID19… |
| Christina Lizaso @btrfly12 RT @BPothuri: @SGO_org focus is delivering #gyncancer care in a safe manner and minimizing #COVID19 exposure #GYNcsm #COVID19 #SGOCOVID19… |
| Dee Sparacio @womenofteal RT @ShannonWestin: I think the issue is that we don't know how long this is going to last - and we certainly want to keep you on track for… |
| Christina Lizaso @btrfly12 RT @womenofteal: @btrfly12 For me the current situation brought a flood of memories when my blood counts were low during treatment and I mi… |
| Dee Sparacio @womenofteal RT @temkins: Totally @ShannonWestin. Every surgical procedure potentially exposes the patient and a dozen HCW to #COVID19. #PPE is still a… |
| Alexa Jett 🦋 @ohhiialexa I want to give the biggest of thanks to all the health care providers and medical staff. You guys are amazing each and every day! In Irish, thank you is “go raibh maith agat” which means “may you have goodness” I wish all the goodness for you! ❤️ #GYNCSM |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @MIShouldTalk @Stigetta @SGO_org They have been setting up guidelines for surgery, chemotherapy, clinical trials and telemedicine #gyncsm #COVID19 #SGOCOVID19 |
| Michele Rhee @michelerhee @MIShouldTalk When you’re making that decision, are there people/doctors/advocacy groups you go to for advice? And, I guess, are they able to help? #gyncsm |
| Bhavana Pothuri @BPothuri Depends on how you are feeling and what your treating #MD thinks whether risks are greater than benefit; These are hard decisions and need to be individualized. .#GYNcsm #COVID19 #SGOCOVID19 |
| Amanda Crowell Itliong @MIShouldTalk @ShannonWestin So would you continue infusions that may or may not be working in a COVID hotbed like Detroit? |
| Christina Lizaso @btrfly12 I'm fortunate that my annual MRI isn't due until July. Did miss my annual skin check. Was also considering a 3yr colonoscopy instead of 5yr but maybe a 4yr next year will be ok. #gyncsm |
| Sarah Temkin @temkins To some degree there should be shared decision making about what the ideal plan is. In some cases, this decision has been resource dependent as to what is safest. #COVID19 #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @beachbound624 There are some situations (high #COVID19 burden) where the institution has stopped all surgery - there is no choice yet. However, other institutions may be able to still do cancer surgery #gyncsm |
| Christina Lizaso @btrfly12 RT @ohhiialexa: I want to give the biggest of thanks to all the health care providers and medical staff. You guys are amazing each and ever… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @BPothuri: Depends on how you are feeling and what your treating #MD thinks whether risks are greater than benefit; These are hard deci… |
 | Beachbound @beachbound624 @ShannonWestin I’m really concerned in event of recurrence surgery will not be an option #gyncsm |
| @AliveAndKicknDD RT @amandanfader: @btrfly12 But telemedicine allow us to keep very close tabs and communicate regularly with our cancer survivors. #gyncsm | |
| Bhavana Pothuri @BPothuri Agree they can be stressful, but know it is more risky to come in now for a screening test. #GYNcsm #COVID19 #SGOCOVID19 |
| Joshua Kesterson @KestersonJoshua Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID 19 Task Force developing guidelines so no patients left behind/forgotten. #gyncsm |
| Dee Sparacio @womenofteal RT @ShannonWestin: @MIShouldTalk @Stigetta @SGO_org They have been setting up guidelines for surgery, chemotherapy, clinical trials and tel… |
| Amanda Nickles Fader, MD @amandanfader @btrfly12 Delays in cancer screening and health check ups should only be temporary. Trying to balance risks of medical care with exposures to COVID-19. #gyncsm |
| Dee Sparacio @womenofteal Great question |
| Dee Sparacio @womenofteal RT @BPothuri: Depends on how you are feeling and what your treating #MD thinks whether risks are greater than benefit; These are hard deci… |
| Alexa Jett 🦋 @ohhiialexa It’s definitely not business as usual! My PCP was called to #COVID19 duty. I was scheduled to see her this month for a full check up. It’s okay though. We’re all making adjustments and I feel good that she’s helping others. #GYNCSM |
| Christina Lizaso @btrfly12 @KestersonJoshua don't forget to include #gyncsm :) @KestersonJoshua "Change is always stressful. The altered and decreased interpersonal interactions with patients and colleagues stinks." |
| Dee Sparacio @womenofteal RT @temkins: To some degree there should be shared decision making about what the ideal plan is. In some cases, this decision has been reso… |
| Sarah Temkin @temkins RT @KestersonJoshua: Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID… |
| Erica Bednar @EMBOSU Genetic counselors across U.S. have been shifting our clinics to telephone/video & finding creative work-arounds to help patients access recommended genetic testing; we're doing our best to keep everyone safe, but missing in-person support of patients & families #gyncsm |
| @AdrienneEcana @amandanfader @btrfly12 #gyncsm I find that NOT taking the risk in these cases is the reward. | |
| Dee Sparacio @womenofteal @ShannonWestin @beachbound624 Are they allowing doctors to practice at hospitals they might not have privileges at? #gyncsm |
| Christina Lizaso @btrfly12 RT @amandanfader: @btrfly12 Delays in cancer screening and health check ups should only be temporary. Trying to balance risks of medical ca… |
| @AliveAndKicknDD @BPothuri They understand. Some of us have developed cancer (me) within a year of a clear scope so...#gyncsm | |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @beachbound624 Only time will tell how long surgery will be limited from #COVID19 In setting of recurrence, however, surgery may not be the ideal primary therapy - your MD and team will help individualize your treatment #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: Genetic counselors across U.S. have been shifting our clinics to telephone/video & finding creative work-arounds to help patien… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @EMBOSU: Genetic counselors across U.S. have been shifting our clinics to telephone/video & finding creative work-arounds to help patien… |
| Amanda Crowell Itliong @MIShouldTalk Many of us are more comfortable with thinking of death but a COVID death alone feels so much worse than we’re used to thinking about. #gyncsm |
| Joshua Kesterson @KestersonJoshua @michelerhee @MIShouldTalk SGO COVID-19 Task Force developing guidance for chemotherapy and surgery considerations in COVID crisis. #gyncsm |
| Michele Rhee @michelerhee @Stigetta @SGO_org Are there any patients/advocates included in the task force to provide the patient perspective on things like risk tolerance & patient preference? #gyncsm |
| Dee Sparacio @womenofteal @beachbound624 @ShannonWestin I hear you. That would be my concern now too. Even for scan s some radiology places have limited availablity #gyncsm |
| Sarah Temkin @temkins @EMBOSU This has been amazing. Do you think this will last? For certain encounters telemedicine seems better than in-person. Maybe more efficient and convenient? #gyncsm |
| Dee Sparacio @womenofteal RT @KestersonJoshua: Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @BPothuri: Agree they can be stressful, but know it is more risky to come in now for a screening test. #GYNcsm #COVID19 #SGOCOVID19 http… |
| Christina Lizaso @btrfly12 RT @KestersonJoshua: Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID… |
| Dee Sparacio @womenofteal Something to keep in mind. #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @EMBOSU Is it business as usual but only telehealth for GC right now, or have things really changed for you guys? #GYNCSM |
| Dee Sparacio @womenofteal RT @btrfly12: @KestersonJoshua don't forget to include #gyncsm :) @KestersonJoshua "Change is always stressful. The altered and decrease… |
| Bhavana Pothuri @BPothuri Yes in high #COVID burden areas this is the case. But even in these areas we are able to do cases that we deem are necessary. Working hard to maintain care so it does not impact outcomes. #GYNcsm #COVID19 #SGOCOVID19 |
| Dee Sparacio @womenofteal RT @EMBOSU: Genetic counselors across U.S. have been shifting our clinics to telephone/video & finding creative work-arounds to help patien… |
| @AdrienneEcana @michelerhee @Stigetta @SGO_org #gyncsm Not that I’m aware | |
| Amanda Crowell Itliong @MIShouldTalk My doctor and I have to weigh the risks together but it’s my decision. Cancer will probably kill me but getting COVID would almost certainly kill me quickly. Not much of a choice in a high risk area. #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @michelerhee @Stigetta @SGO_org Co-signing this question #GYNCSM |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @womenofteal @beachbound624 This is still a work in progress. Telemedicine is one option but there are different laws/regulations across states #gyncsm |
| Dee Sparacio @womenofteal RT @ShannonWestin: @beachbound624 Only time will tell how long surgery will be limited from #COVID19 In setting of recurrence, however, su… |
| Alexa Jett 🦋 @ohhiialexa @KestersonJoshua @EMBOSU Genetic counseling #GYNCSM |
| Amanda Nickles Fader, MD @amandanfader Agree, @temkins. Telemedicine is a great alternative to deliver care for our patients and cancer survivors. #gynscm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @ohhiialexa @michelerhee @Stigetta @SGO_org .@Stigetta is on the task force - she is an amazing advocate! #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @BPothuri: Yes in high #COVID burden areas this is the case. But even in these areas we are able to do cases that we deem are necessary.… |
| Annie Ellis @Stigetta @ohhiialexa @michelerhee @SGO_org I am a p-atient advocate member of @SGO_org COVID-19 Task Force #gyncsm |
| Bhavana Pothuri @BPothuri Yes lots of #MDs getting deployed to help on COVID-19 floors. We are trying to help the best we can where we are all needed. Thanks for understanding. #GYNcsm #COVID19 #SGOCOVID19 |
| Erica Bednar @EMBOSU @temkins Telegenetics existed prior to the pandemic, but clinic capabilities vary place by place -- driven most by state, local, federal laws & payer, institutional policies. Its a great solution for now, but hope if it continues that it can be done in a sustainable way! #gyncsm |
| Annie Ellis @Stigetta @AdrienneEcana @michelerhee @SGO_org I am a atient advocate member of @SGO_org COVID-19 Task Force #gyncsm |
| Christina Lizaso @btrfly12 I'm seeing more and more resources emerging every day as we all try to re-do our routines. Change is always hard. The amount of resources for cancer patients is increasing too. Glad top minds are working hard on guidelines. #gyncsm |
| Dee Sparacio @womenofteal @MIShouldTalk I feel the same way. My worst fear is not having family by my side If I get the virus. Their presence helped so much during treatment. #gyncsm |
| Michele Rhee @michelerhee @AdrienneEcana @Stigetta @SGO_org It might be helpful to include that patient perspective in the guideline development to make sure that you’re not missing that viewpoint. The patient perspective isn’t the only data point, but it’s a valuable one. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @beachbound624 a combination of both - most hospitals in a given area will have similar regulations. In NYC there are #COVID19 hospitals #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @EMBOSU: @temkins Telegenetics existed prior to the pandemic, but clinic capabilities vary place by place -- driven most by state, local… |
| Joshua Kesterson @KestersonJoshua @ohhiialexa @EMBOSU #gyncsm Things are impacted in as much as the prevalence of COVID in geographic area. |
| Dee Sparacio @womenofteal RT @Stigetta: @AdrienneEcana @michelerhee @SGO_org I am a atient advocate member of @SGO_org COVID-19 Task Force #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @amandanfader: @btrfly12 Delays in cancer screening and health check ups should only be temporary. Trying to balance risks of medical ca… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @KestersonJoshua: Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID… |
| Sarah Temkin @temkins RT @womenofteal: @MIShouldTalk I feel the same way. My worst fear is not having family by my side If I get the virus. Their presence helped… |
| Dee Sparacio @womenofteal RT @ShannonWestin: @beachbound624 a combination of both - most hospitals in a given area will have similar regulations. In NYC there are #… |
| Annie Ellis @Stigetta As a Patient advocate member of @SGO_org COVID-19 Task Force, I can assure you that caring for patients is their priority at all times. The patient perspective is embraced at every meeting. #gyncsm |
| Dee Sparacio @womenofteal RT @BPothuri: Yes in high #COVID burden areas this is the case. But even in these areas we are able to do cases that we deem are necessary.… |
| Alexa Jett 🦋 @ohhiialexa @BPothuri Yes! We are in a medical crisis, and all of the general public needs to understand just like in the military, doctors can get called to the front lines. I am so happy because I would want her to be my loved one’s doctor if they contracted #COVID19 ! #GYNCSM |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @BPothuri: Yes lots of #MDs getting deployed to help on COVID-19 floors. We are trying to help the best we can where we are all needed.… |
| Joshua Kesterson @KestersonJoshua @michelerhee @AdrienneEcana @Stigetta @SGO_org #gyncsm absolutely! agreed. Working on guidelines/rescources. Please visit Foundationforwomenscancer website |
| Dee Sparacio @womenofteal @michelerhee @Stigetta @SGO_org @AdrienneEcana @Stigetta is a patient advocate on the Task force #gyncsm |
| @AdrienneEcana @Stigetta @SGO_org #gyncsm Thank you for your representation!! | |
| Christina Lizaso @btrfly12 #gyncsm What are some of the best cancer (and non-cancer) Covid-19 resources you have seen? What do you think are some of the most important things for gyn cancer patients to know? |
| Michele Rhee @michelerhee @Stigetta @SGO_org Yay!! So happy you’re involved! #gyncsm |
| Dee Sparacio @womenofteal RT @ShannonWestin: @womenofteal @beachbound624 This is still a work in progress. Telemedicine is one option but there are different laws/re… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @Stigetta: As a Patient advocate member of @SGO_org COVID-19 Task Force, I can assure you that caring for patients is their priority at… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @ohhiialexa: @BPothuri Yes! We are in a medical crisis, and all of the general public needs to understand just like in the military, doc… |
| Bhavana Pothuri @BPothuri Yes- I know and it is hard and will hopefully ease in a couple of months. I am not recc screening now for my patients. #GYNcsm #COVID19 #SGOCOVID19 |
| Dee Sparacio @womenofteal RT @BPothuri: Yes lots of #MDs getting deployed to help on COVID-19 floors. We are trying to help the best we can where we are all needed.… |
| Dee Sparacio @womenofteal @EMBOSU @temkins I had another genetics test right before this all happened and I had the results discussion on the phone #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: I'm seeing more and more resources emerging every day as we all try to re-do our routines. Change is always hard. The amount… |
| Inspire @InspireIsHealth RT @btrfly12: #gyncsm What are some of the best cancer (and non-cancer) Covid-19 resources you have seen? What do you think are some of t… |
| Joshua Kesterson @KestersonJoshua @btrfly12 #gyncsm I've visited the CDC website more in last month than I have in my entire lifetime to be honest |
| Amanda Nickles Fader, MD @amandanfader Agree, @Stigetta! Our patients and their care are priority #1 with every COVID-19 guideline we write. #gyncsm |
| Dee Sparacio @womenofteal RT @Stigetta: As a Patient advocate member of @SGO_org COVID-19 Task Force, I can assure you that caring for patients is their priority at… |
| Christina Lizaso @btrfly12 Covid19 resources for gyn cancer patients: Foundation for Women’s Cancer @GYNcancer https://t.co/kMxQM6dgA2 https://t.co/LhtUGGABUv #gyncsm |
| Erica Bednar @EMBOSU @ohhiialexa It's a bit different place by place depending on state laws & clinic policies. luckily we can do most things remotely but we can be limited by laws, federal policies (GCs aren't recognized as providers by Medicare) & processes (some labs easier to use than others) #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk So where are these SGO guidelines available? #gyncsm |
| Joshua Kesterson @KestersonJoshua @womenofteal @EMBOSU @temkins #gyncsm Dee, how was that versus an inperson visit? |
| Annie Ellis @Stigetta @michelerhee @AdrienneEcana @SGO_org The @SGO_org COVID-19 Task Force puts patents first in all their guidelines. They have been very responsive to the patient perspective! #gyncsm |
| Emma Rossi @RobinsonRossiGO @temkins @EMBOSU Yes. Discussing scan or pathology results by web visits are more personal than telephone & more timely than bringing patients in to the office. But how do patients feel about getting this kind of news via video conference? #gyncsm |
| Dee Sparacio @womenofteal [REDACTED USER] @btrfly12 Hi there Stacey! We've got a few to share. #gyncsm |
| Sarah Temkin @temkins Except when telehealth becomes telehell! 🤣😂 #COVID19 #gyncsm https://t.co/xD73P3UNpe |
| Dee Sparacio @womenofteal RT @KestersonJoshua: @michelerhee @AdrienneEcana @Stigetta @SGO_org #gyncsm absolutely! agreed. Working on guidelines/rescources. Please… |
| Bhavana Pothuri @BPothuri Annie has been present and voiced great concerns. So important to hear the patient perspective as we develop content for the #SGOCOVID19 TF #GYNcsm #COVID19 |
| @AliveAndKicknDD @BPothuri It gives me a hall pass when I tell Julia Smith I’m behind on my scans. 😀 #gyncsm | |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm What are some of the best cancer (and non-cancer) Covid-19 resources you have seen? What do you think are some of t… |
| Sarah Temkin @temkins RT @RobinsonRossiGO: @temkins @EMBOSU Yes. Discussing scan or pathology results by web visits are more personal than telephone & more timel… |
| Alexa Jett 🦋 @ohhiialexa For AYA’s, check out @ElephantsTea ‘s #COVID19 resource page. I love @DansHouseofHope, @LacunaLoft, and @MDAndersonNews Cancer 180 program also for additional resources! #GYNCSM https://t.co/bvAqQQhUvg |
| @AliveAndKicknDD RT @btrfly12: Covid19 resources for gyn cancer patients: Foundation for Women’s Cancer @GYNcancer https://t.co/kMxQM6dgA2 https://t.co/… | |
| Dee Sparacio @womenofteal RT @amandanfader: Agree, @Stigetta! Our patients and their care are priority #1 with every COVID-19 guideline we write. #gyncsm https://t.c… |
| Sarah Temkin @temkins RT @womenofteal: @EMBOSU @temkins I had another genetics test right before this all happened and I had the results discussion on the phone… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin The @SGO_org website is a great resource for #COVID19 https://t.co/CIZMpnMG7a #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Covid19 resources for gyn cancer patients: Foundation for Women’s Cancer @GYNcancer https://t.co/kMxQM6dgA2 https://t.co/… |
| Christina Lizaso @btrfly12 Covid19 webinars this week for cancer patients: Join @CancerAdvocacy Thursday, April 9, Noon ET: https://t.co/VisaG7yNvI Join @SHAREing and @GYNCancer on Friday, April 10 at 2pm ET https://t.co/vBc3KWfiGe #gyncsm |
| Joshua Kesterson @KestersonJoshua @Stigetta @michelerhee @AdrienneEcana @SGO_org #gyncsm thanks annie. you and your fellow patients are why the taskforce exists, why we do what we do |
| Amanda Nickles Fader, MD @amandanfader @btrfly12 The SGO COVID-19 Task Force guidelines are specific for GYN cancers. #gyncsm https://t.co/f6Vl0Jv8tq |
 | FdtnForWomensCancer @GYNCancer RT @Stigetta: As a Patient advocate member of @SGO_org COVID-19 Task Force, I can assure you that caring for patients is their priority at… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @amandanfader: @btrfly12 The SGO COVID-19 Task Force guidelines are specific for GYN cancers. #gyncsm https://t.co/f6Vl0Jv8tq |
| Annie Ellis @Stigetta @temkins Oh goodness! |
| Amanda Nickles Fader, MD @amandanfader @KestersonJoshua @Stigetta @michelerhee @AdrienneEcana @SGO_org Here, here!! #gyncsm |
| Joshua Kesterson @KestersonJoshua @beachbound624 @Stigetta @SGO_org yes. ASAP #gyncsm |
| Sarah Temkin @temkins RT @KestersonJoshua: @Stigetta @michelerhee @AdrienneEcana @SGO_org #gyncsm thanks annie. you and your fellow patients are why the taskfor… |
| Christina Lizaso @btrfly12 RT @amandanfader: @btrfly12 The SGO COVID-19 Task Force guidelines are specific for GYN cancers. #gyncsm https://t.co/f6Vl0Jv8tq |
| Amanda Nickles Fader, MD @amandanfader @beachbound624 @Stigetta @SGO_org Yes, they are published online and being submitted for publication in peer reviewed medical journals. #gyncsm |
| Dee Sparacio @womenofteal @KestersonJoshua @EMBOSU @temkins It went well. I had the pre- test visit filling in pedigree etc so I had time to get to know the counselor. This was do an expanded panel to follow up on my tumor testing. #gyncsm |
| Dee Sparacio @womenofteal RT @RobinsonRossiGO: @temkins @EMBOSU Yes. Discussing scan or pathology results by web visits are more personal than telephone & more timel… |
 | Tanya Temkin @tanyaltee Hi. Sorry I lost track of time so I’m late. It’s a side effect of sheltering in place. #gyncsm |
| @AdrienneEcana @btrfly12 @CancerAdvocacy @SHAREing @GYNCancer #gyncsm I appreciate this info!! Will add to my calendar. | |
| @AliveAndKicknDD @RobinsonRossiGO @temkins @EMBOSU Anecdotally, patients are telling me that they were given results electronically and that they’re comfortable with the process #gyncsm | |
| Dee Sparacio @womenofteal @temkins HAHA - I had that happen the other day for a support group meeting - I was 5 minutes too early. #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @EMBOSU That’s definitely interesting. I believe that GC’s are a huge factor in the care team, and that genetic testing makes healthcare better. Especially for AYA’s and long term screenings. Disappointing that you aren’t getting the recognition you deserve. #GYNCSM |
| Dee Sparacio @womenofteal RT @BPothuri: Annie has been present and voiced great concerns. So important to hear the patient perspective as we develop content for the… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @beachbound624 @Stigetta @SGO_org We just submitted our chemotherapy and #clinicaltrials guidelines to a peer-reviewed journal - rapid turn around and teamwork - @BPothuri led this effort!! #gyncsm #COVID19 #SGOCOVID19 |
| Christina Lizaso @btrfly12 #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer is invited to complete this survey from research advocate @Stigetta on survivors' experiences during the COVID-19 pandemic. https://t.co/fzCt66ojZ3 |
| Annie Ellis @Stigetta RT @ShannonWestin: @beachbound624 @Stigetta @SGO_org We just submitted our chemotherapy and #clinicaltrials guidelines to a peer-reviewed j… |
| Dee Sparacio @womenofteal RT @ShannonWestin: The @SGO_org website is a great resource for #COVID19 https://t.co/CIZMpnMG7a #gyncsm https://t.co/96ahXqwEmT |
| Amanda Nickles Fader, MD @amandanfader [REDACTED USER] @RobinsonRossiGO @temkins @EMBOSU Yes, we have heard this from many patients. And not having to sit in traffic or in patient waiting rooms can be nice, too. :) #gyncsn |
| Bhavana Pothuri @BPothuri FWC COVID 19 page is an excellent patient resource. Also reach us on the FWC facebook page which is supported by the #SGO communications committee. #COVID19 #GYNcsm #SGOCOVID19 |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @btrfly12: Covid19 webinars this week for cancer patients: Join @CancerAdvocacy Thursday, April 9, Noon ET: https://t.co/VisaG7yNvI Jo… |
| Joshua Kesterson @KestersonJoshua [REDACTED USER] @RobinsonRossiGO @temkins @EMBOSU #gyncsm That's the feedback I've gotten from patients as well. Feels better knowing you're talking to a real, living, breathing, caring human being than just a voice on the telephone. |
| Michele Rhee @michelerhee RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i… |
| Annie Ellis @Stigetta RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i… |
| Dee Sparacio @womenofteal Resource: @DrMarkham- What People With Cancer Need to Know https://t.co/t8SRueBT5j on @CancerDotNet #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @tanyaltee Hey Tanya! #GYNCSM |
| Christina Lizaso @btrfly12 #gyncsm @SHAREing COVID-19 Updates for Gynecologic Cancer Patients https://t.co/tX0DlaSfyJ |
| @AdrienneEcana @temkins Hi Sara, I think I sat next to you at the last NRG meeting. Look fwd to continue working with you through ECANA and Dr. Doll!! | |
| Tanya Temkin @tanyaltee One concerning hear a lot about is whether people on maintenance such as PARPs are immunocompromised even if labs are normal. #gyncsm |
| Dee Sparacio @womenofteal RT @amandanfader: @btrfly12 The SGO COVID-19 Task Force guidelines are specific for GYN cancers. #gyncsm https://t.co/f6Vl0Jv8tq |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @KestersonJoshua [REDACTED USER] @RobinsonRossiGO @temkins @EMBOSU I prefer it to telephone calls!!! #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i… |
| Christina Lizaso @btrfly12 RT @BPothuri: FWC COVID 19 page is an excellent patient resource. Also reach us on the FWC facebook page which is supported by the #SGO com… |
| Alexa Jett 🦋 @ohhiialexa RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @BPothuri: FWC COVID 19 page is an excellent patient resource. Also reach us on the FWC facebook page which is supported by the #SGO com… |
| Annie Ellis @Stigetta Questions? Comments? Concerns? for @SGO_org & @GYNCancer? You can leave a post FWC’s Facebook page! https://t.co/MZrSepNzHG #gyncsm |
| Dee Sparacio @womenofteal @tanyaltee Glad you made it. I forget what day of the week it is now. #gyncsm |
| Amanda Nickles Fader, MD @amandanfader @tanyaltee Regardless of the type of treatment, the best advice is to talk with your cancer care team about whether or not any modifications to your cancer treatment regimen are necessary. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin Awesome opportunity to share your #COVID19 experience as a #ovariancancer #survivor - check it out!! #gyncsm |
| Dee Sparacio @womenofteal RT @ohhiialexa: @EMBOSU That’s definitely interesting. I believe that GC’s are a huge factor in the care team, and that genetic testing mak… |
| Erica Bednar @EMBOSU @ohhiialexa Thanks! We can use all of the support we can get -- @GeneticCouns have legislation introduced to help improve genetic counselor recognition by Medicare. Here is more info: https://t.co/WqsWj8cV8U #gyncsm |
| Sarah Temkin @temkins @ShannonWestin @KestersonJoshua [REDACTED USER] @RobinsonRossiGO @EMBOSU Agree! It's way better than a phone call. Half the time I call patients and right before I hang up they go "Oh, I didn't realize it was you, Dr. Temkin!" #gyncsm |
| Dee Sparacio @womenofteal RT @ShannonWestin: @beachbound624 @Stigetta @SGO_org We just submitted our chemotherapy and #clinicaltrials guidelines to a peer-reviewed j… |
| @AliveAndKicknDD RT @ohhiialexa: @EMBOSU That’s definitely interesting. I believe that GC’s are a huge factor in the care team, and that genetic testing mak… | |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i… |
| Bhavana Pothuri @BPothuri me too! #COVID19 #GYNcsm #SGOCOVID19 |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm @SHAREing COVID-19 Updates for Gynecologic Cancer Patients https://t.co/tX0DlaSfyJ |
| @AliveAndKicknDD RT @womenofteal: Resource: @DrMarkham- What People With Cancer Need to Know https://t.co/t8SRueBT5j on @CancerDotNet #gyncsm | |
| Christina Lizaso @btrfly12 Yes. And you aren't "bothering" them! They are all working tirelessly but they don't want you to hold in your questions. Reach out to your care team #gyncsm |
| Emma Rossi @RobinsonRossiGO @ShannonWestin @KestersonJoshua [REDACTED USER] @temkins @EMBOSU It’s definitely a practice change that I’m going to do more of even when this is all “over”. Now that I’ve ironed out the kinks. #gyncsm |
| @AdrienneEcana @ShannonWestin #gyncsm Unfortunately, I qualify for this survey as well (LOL), will be happy to participate!! | |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @Stigetta: Questions? Comments? Concerns? for @SGO_org & @GYNCancer? You can leave a post FWC’s Facebook page! https://t.co/MZrSepNzHG #… |
| Erica Bednar @EMBOSU [REDACTED USER] @KestersonJoshua @RobinsonRossiGO @temkins 100%!! Non-verbals provide more information than words spoken ... Huge for being to build trust and relationships |
| Amanda Crowell Itliong @MIShouldTalk @ShannonWestin @SGO_org Thank you SGO team! Looks like you’ve put in lots of hard work! I guess even though this is maybe my last hope, since my infusions aren’t curative and might not even be working, guidelines would say to put it off. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @btrfly12: #gyncsm @SHAREing COVID-19 Updates for Gynecologic Cancer Patients https://t.co/tX0DlaSfyJ |
| Bhavana Pothuri @BPothuri definitely agree. These decisions are so nuanced and only you and your doctor can make them after reviewing the risks and benefits and your individual needs. #COVID19 #GYNcsm #SGOCOVID19 |
| Dee Sparacio @womenofteal Great question @KestersonJoshua |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @womenofteal: Resource: @DrMarkham- What People With Cancer Need to Know https://t.co/t8SRueBT5j on @CancerDotNet #gyncsm |
| Joshua Kesterson @KestersonJoshua @EMBOSU @ohhiialexa @GeneticCouns Genetics is one of the fastest growing fields in medicine. GC's role in cancer care will only increase in future. #gyncsm |
| Mimi @Mimiinmendon RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i… |
| Dee Sparacio @womenofteal RT @amandanfader: @tanyaltee Regardless of the type of treatment, the best advice is to talk with your cancer care team about whether or no… |
| Alexa Jett 🦋 @ohhiialexa @EMBOSU @GeneticCouns Thank you, I am with you 100% and I will look more into how I can help add my voice. Medicare must cover it! #GYNCSM |
| Sarah Temkin @temkins RT @RobinsonRossiGO: @ShannonWestin @KestersonJoshua [REDACTED USER] @temkins @EMBOSU It’s definitely a practice change that I’m going to do m… |
| Dee Sparacio @womenofteal I have completed this survey ...Have You? |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin I think it's going to become more acceptable to patients and providers - we are going to normalize this and reduce travel!!! #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: Yes. And you aren't "bothering" them! They are all working tirelessly but they don't want you to hold in your questions. Reac… |
| Dee Sparacio @womenofteal RT @EMBOSU: @ohhiialexa Thanks! We can use all of the support we can get -- @GeneticCouns have legislation introduced to help improve genet… |
| Dee Sparacio @womenofteal RT @btrfly12: Yes. And you aren't "bothering" them! They are all working tirelessly but they don't want you to hold in your questions. Reac… |
| Annie Ellis @Stigetta RT @BPothuri: definitely agree. These decisions are so nuanced and only you and your doctor can make them after reviewing the risks and ben… |
| Amanda Nickles Fader, MD @amandanfader @MIShouldTalk @ShannonWestin @SGO_org Hang in there! Cancer care is still being prioritized, but changes are being made to minimize patients' risk of exposure - especially important as we recognize that cancer patients may be at high risk for becoming quite ill from COVID-19. #gyncsm |
| Christina Lizaso @btrfly12 .@FacingOurRisk has put out some great resources: Coping with Hereditary Cancer During the COVID-19 Pandemic https://t.co/1NgVdUQbDM A second helping of stress: Coping with hereditary cancer during the COVID-19 pandemic - register to view https://t.co/IF7dXu0WBd #gyncsm |
| Alexa Jett 🦋 @ohhiialexa RT @btrfly12: Yes. And you aren't "bothering" them! They are all working tirelessly but they don't want you to hold in your questions. Reac… |
| Dee Sparacio @womenofteal RT @ShannonWestin: I think it's going to become more acceptable to patients and providers - we are going to normalize this and reduce trave… |
| Annie Ellis @Stigetta @AdrienneEcana @ShannonWestin thank you @AdrienneEcana |
| Amanda Crowell Itliong @MIShouldTalk I guess I don’t know what I need other than to feel heard, not alone in making the life/death decisions about treatment vs. COVID risk. I’ve been on a few conference calls and all the other advocates don’t actually have cancer now. #gyncsm |
| @AdrienneEcana @ShannonWestin #gyncsm I wonder if it will also reduce Anxiety!! | |
| Annie Ellis @Stigetta RT @btrfly12: Yes. And you aren't "bothering" them! They are all working tirelessly but they don't want you to hold in your questions. Reac… |
| Bhavana Pothuri @BPothuri Agree- telemedicine is here to stay and we learned to use it in 2 days! #COVID19 #GYNcsm #SGOCOVID19 |
| Sarah Temkin @temkins There are patients with poor internet connections or without devices. I worry about their access. #cancerdisparities #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @temkins: There are patients with poor internet connections or without devices. I worry about their access. #cancerdisparities #gyncsm h… |
| Alexa Jett 🦋 @ohhiialexa RT @amandanfader: @MIShouldTalk @ShannonWestin @SGO_org Hang in there! Cancer care is still being prioritized, but changes are being made… |
| Dee Sparacio @womenofteal Another resource: @CancerAdvocacy Coronavirus and Cancer Resources for Survivors https://t.co/RctGtp35fV #gyncsm |
| Joshua Kesterson @KestersonJoshua @ShannonWestin #gyncsm Agree Shannon. Theres no going back now. Something good has to come out of the COVID crisis and telemedicine and the improved patient access and convenience is going to be one of those positives. |
| Erica Bednar @EMBOSU RT @btrfly12: #gyncsm Annie @Stigetta is also doing a patient survey: Any person w/ #ovariancancer #fallopiancancer or #peritonealcancer i… |
| Dee Sparacio @womenofteal RT @temkins: There are patients with poor internet connections or without devices. I worry about their access. #cancerdisparities #gyncsm h… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin This is true - we will continue to care for them the best ways that we can - but it is a huge disparity #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk @amandanfader @ShannonWestin @SGO_org Overall I’m on the side of putting it off and I’m getting pressure to continue treatment. |
| Sarah Temkin @temkins RT @ShannonWestin: This is true - we will continue to care for them the best ways that we can - but it is a huge disparity #gyncsm https:/… |
| Amanda Nickles Fader, MD @amandanfader @MIShouldTalk @MIShouldTalk, you are not alone or forgotten! We've got your back!!!! We are thinking about these issues 24/7. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @BPothuri: Agree- telemedicine is here to stay and we learned to use it in 2 days! #COVID19 #GYNcsm #SGOCOVID19 https://t.co/mjGEDDHl… |
| Sarah Temkin @temkins RT @KestersonJoshua: @ShannonWestin #gyncsm Agree Shannon. Theres no going back now. Something good has to come out of the COVID crisis a… |
| Sarah Temkin @temkins RT @womenofteal: Another resource: @CancerAdvocacy Coronavirus and Cancer Resources for Survivors https://t.co/RctGtp35fV #gyncsm |
| Bhavana Pothuri @BPothuri Please understand that you all are very important and we are making the best decisions we can during this time of greater infection risk and increased resource limitations. Thank-you for your patience and understanding #COVID19 #GYNcsm #SGOCOVID19 |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @BPothuri: Please understand that you all are very important and we are making the best decisions we can during this time of greater inf… |
| Joshua Kesterson @KestersonJoshua @MIShouldTalk #gyncsm Not Alone. On your side. |
| Christina Lizaso @btrfly12 There are already studies trying to tackle the big questions: How long is it safe to delay gynecologic cancer surgery? By @RobinsonRossiGO https://t.co/1I33Q6i40W #gyncsm |
| @AliveAndKicknDD RT @BPothuri: Agree- telemedicine is here to stay and we learned to use it in 2 days! #COVID19 #GYNcsm #SGOCOVID19 | |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @btrfly12: There are already studies trying to tackle the big questions: How long is it safe to delay gynecologic cancer surgery? By @… |
 | liz swisher @SwisherLiz RT @BPothuri: FWC COVID 19 page is an excellent patient resource. Also reach us on the FWC facebook page which is supported by the #SGO com… |
| Amanda Nickles Fader, MD @amandanfader [REDACTED USER] @ShannonWestin Talk to your state and local representatives. Many telemedicine regulations are state-specific. Would be great to continue using post-COVID-19. #gyncsm #sgocovid19 |
| Alexa Jett 🦋 @ohhiialexa @MIShouldTalk You bring up such a good point, and while it’s uncomfortable, it needed to be said. Active treatment vs survivorship both have their different challenges, and it’s important to remember these perspectives. Stage 4 also doesn’t have the voice it needs #GYNCSM |
| Erica Bednar @EMBOSU Resources for coping with hereditary cancer in the midst of COVID-19 #gcchat #gencsm #HereditaryCancer |
| Christina Lizaso @btrfly12 Here's a piece by one of the original #gyncsm healthcare mods: @DrMarkham- What People With Cancer Need to Know https://t.co/jtoMx7OSxJ |
| Dee Sparacio @womenofteal @BPothuri And we learned to do video conferencing/ Skype / Zoom for support groups too! #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk @amandanfader @ShannonWestin @SGO_org I’m saying I’m in agreement with the guidelines - glad they are posted! Saying Thanks! #gyncsm |
| Dee Sparacio @womenofteal @temkins I worry about this too. |
| Tanya Temkin @tanyaltee At Kaiser Northern California we’ve been using telephone and video visits for years. It’s our “old normal!” |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin This is important! We are limited in #telehealth by regulations - we need legislators to learn from this issue and expand our ability to provide care across state lines #gyncsm |
| Christina Lizaso @btrfly12 RT @ohhiialexa: @MIShouldTalk You bring up such a good point, and while it’s uncomfortable, it needed to be said. Active treatment vs survi… |
| Joshua Kesterson @KestersonJoshua [REDACTED USER] @btrfly12 #gyncsm Stacey, thanks for hanging out. Stay safe. |
| Sarah Temkin @temkins RT @ShannonWestin: This is important! We are limited in #telehealth by regulations - we need legislators to learn from this issue and expa… |
| Amanda Nickles Fader, MD @amandanfader Word, @ShannonWestin! #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @temkins Yes! My internet situation is less than ideal by far. I live in East Texas, not as rural as other areas here, but internet is a huge problem! I had to use my phone as a mobile hotspot for a video visit. #GYNCSM |
| Annie Ellis @Stigetta @beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal You can connect with a patient mentor through OCRA's Woman to Woman Program. https://t.co/VGuNUoEG7v #gyncsm |
| Dee Sparacio @womenofteal RT @BPothuri: Please understand that you all are very important and we are making the best decisions we can during this time of greater inf… |
| Joshua Kesterson @KestersonJoshua @ShannonWestin #gyncsm Agree. Lack of Internet access should not negatively impact care/access to care. |
| Amanda Crowell Itliong @MIShouldTalk @KestersonJoshua Thanks! I know it’s an impossible decision for my doc too and all of you are making impossible decisions! #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @Stigetta: @beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal You can connect with a patient mentor through OCRA's Woman to… |
| Dee Sparacio @womenofteal RT @btrfly12: There are already studies trying to tackle the big questions: How long is it safe to delay gynecologic cancer surgery? By @… |
| Erica Bednar @EMBOSU @temkins Language differences are also a challenge; interpreting clinic appointments is often challenging baseline, still need to find more #equitable solutions in order for telemedicine to not create/increase disparities imo #gyncsm |
| Dee Sparacio @womenofteal RT @amandanfader: [REDACTED USER] @ShannonWestin Talk to your state and local representatives. Many telemedicine regulations are state-specifi… |
| Sarah Temkin @temkins RT @Stigetta: @beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal You can connect with a patient mentor through OCRA's Woman to… |
| Christina Lizaso @btrfly12 As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie Ellis via @Globeathon https://t.co/vNXx7qisIW Cervivor @IAmCervivor https://t.co/ggLbcx1FCi #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @ShannonWestin What do advocates need to know about this? #GYNCSM |
| Dee Sparacio @womenofteal RT @ohhiialexa: @MIShouldTalk You bring up such a good point, and while it’s uncomfortable, it needed to be said. Active treatment vs survi… |
| liz swisher @SwisherLiz RT @ShannonWestin: This is important! We are limited in #telehealth by regulations - we need legislators to learn from this issue and expa… |
| Amanda Nickles Fader, MD @amandanfader This is an amazing program, @Stigetta! Many hospitals across U.S. have Woman 2 Woman program. #gyncsm |
| @AliveAndKicknDD RT @EMBOSU: @temkins Language differences are also a challenge; interpreting clinic appointments is often challenging baseline, still need… | |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @btrfly12: As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie… |
| Dee Sparacio @womenofteal [REDACTED USER] @btrfly12 Take care -Stay safe Stacey. #gyncsm |
| Alexa Jett 🦋 @ohhiialexa @MIShouldTalk @KestersonJoshua Truth, all the way! #GYNCSM |
| Dee Sparacio @womenofteal @ShannonWestin I didn't realize that -I guess insurance payment impacts the use too. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate laws to allow #telehealth #gyncsm |
| Sarah Temkin @temkins I hope I shared this correctly. One of my patients sent this to me last week. It's incredible what we can innovate during difficult times. #gyncsm #COVID https://t.co/Hco8vDbElG |
| @AliveAndKicknDD RT @amandanfader: This is an amazing program, @Stigetta! Many hospitals across U.S. have Woman 2 Woman program. #gyncsm | |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @womenofteal Payment - but they can also take your license , which is a greater issues for most MDs and providers #gyncsm |
| Alexa Jett 🦋 @ohhiialexa RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la… |
| @AliveAndKicknDD RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la… | |
| Sarah Temkin @temkins RT @EMBOSU: @temkins Language differences are also a challenge; interpreting clinic appointments is often challenging baseline, still need… |
| Beachbound @beachbound624 @Stigetta @ShannonWestin @SGO_org @GYNCancer @womenofteal @womenofteal @Stigetta I’m looking for more of an advocate than support I think. For example, am I asking the correct questions and who are my resources should I be in that situation? What are current trends in light of COVID? #gyncsm |
| Dee Sparacio @womenofteal What brought me hope was this Via @KDRichardson924 Karen J. Williams PhD from @KarmaOncology shared this graphic on LinkedIn. It is good to see the research into treatments and vaccines taking place. #gyncsm https://t.co/MZqxWivUF4 |
 | Jessica Foglesong MD 👩🏻⚕️ @foglesong_md RT @btrfly12: As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie… |
| Bhavana Pothuri @BPothuri RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la… |
| @AdrienneEcana RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la… | |
| Tanya Temkin @tanyaltee And these categories are so fluid. Many of us move in and out as we have recurrences and remissions. #gyncsm |
| Christina Lizaso @btrfly12 I guess part of my self-care is being a resource gather-er... #gyncsm |
| Amanda Nickles Fader, MD @amandanfader Si, por supuesto! I agree wholeheartedly. Interpreter services at many urban hospitals across U.S. are ramping up to accommodate these patient needs. #gyncsm |
| Christina Lizaso @btrfly12 Practicing self-care during the Time of Coronavirus @JBBC for @power4patients https://t.co/26oqPisk9I #gyncsm #patientchat |
| Sarah Temkin @temkins RT @btrfly12: I guess part of my self-care is being a resource gather-er... #gyncsm |
| @KDRichardson924 #gyncsm As we hear more about the rates of infection/deaths of African Americans with COVID19, I worry we will continue to be excluded from clinical trials due to existing comorbidities. | |
| Dee Sparacio @womenofteal @EMBOSU @temkins @CancerDotNet has Coronavirus info https://t.co/nNPJLHvFSo Some resources are in spanish. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie… |
| Christina Lizaso @btrfly12 RT @womenofteal: @EMBOSU @temkins @CancerDotNet has Coronavirus info https://t.co/nNPJLHvFSo Some resources are in spanish. #gyncsm |
| Christina Lizaso @btrfly12 RT @KDRichardson924: #gyncsm As we hear more about the rates of infection/deaths of African Americans with COVID19, I worry we will continu… |
| Inspire @InspireIsHealth RT @womenofteal: @EMBOSU @temkins @CancerDotNet has Coronavirus info https://t.co/nNPJLHvFSo Some resources are in spanish. #gyncsm |
| Dee Sparacio @womenofteal Another resource from Livestrong @livestrong Tips and Tools for living with Cancer during Covid-19 https://t.co/tTivEfKSAP #gyncsm |
| Christina Lizaso @btrfly12 RT @tanyaltee: And these categories are so fluid. Many of us move in and out as we have recurrences and remissions. #gyncsm https://t.co/8z… |
| Alexa Jett 🦋 @ohhiialexa @ShannonWestin @womenofteal Not okay! Legislation needs to get with the times. This should be a huge lesson that telehealth can, and indeed DOES work. #patientadvocates, we have to go to battle on this one! #GYNCSM |
| Emma Rossi @RobinsonRossiGO @btrfly12 Not only cancer surgery being delayed, but also the procedures that diagnose cancers are being delayed. Very hard time for patients. #gyncsm |
| Inspire @InspireIsHealth RT @btrfly12: Practicing self-care during the Time of Coronavirus @JBBC for @power4patients https://t.co/26oqPisk9I #gyncsm #patientchat |
| Dee Sparacio @womenofteal RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la… |
| Sarah Temkin @temkins RT @btrfly12: There are already studies trying to tackle the big questions: How long is it safe to delay gynecologic cancer surgery? By @… |
| Sarah Temkin @temkins RT @RobinsonRossiGO: @btrfly12 Not only cancer surgery being delayed, but also the procedures that diagnose cancers are being delayed. Very… |
| Annie Ellis @Stigetta @beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal Most hospitals have a patient advocates to help patients navigate issues #gyncsm |
| Dee Sparacio @womenofteal RT @temkins: I hope I shared this correctly. One of my patients sent this to me last week. It's incredible what we can innovate during diff… |
| @AliveAndKicknDD RT @womenofteal: @EMBOSU @temkins @CancerDotNet has Coronavirus info https://t.co/nNPJLHvFSo Some resources are in spanish. #gyncsm | |
 | Ali Saiz, MD MS @AllisonSaizMD RT @btrfly12: As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @ohhiialexa @womenofteal Please and thank you!!! We will be right there with you! #gyncsm |
| Christina Lizaso @btrfly12 on the International side #gyncsm International Gynecologic Cancer Society @IGCSociety https://t.co/J5DCTY6Ym0 |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @womenofteal: Another resource from Livestrong @livestrong Tips and Tools for living with Cancer during Covid-19 https://t.co/tTivEfKSA… |
| Ali Saiz, MD MS @AllisonSaizMD RT @ShannonWestin: This is important! We are limited in #telehealth by regulations - we need legislators to learn from this issue and expa… |
| Alexa Jett 🦋 @ohhiialexa @tanyaltee Oh, definitely! Cancer life is not black and white like movies would like to portray. We need all voices for all stages! #GYNCSM |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @RobinsonRossiGO: @btrfly12 Not only cancer surgery being delayed, but also the procedures that diagnose cancers are being delayed. Very… |
| Debra Hallisey @advocatemomdad @womenofteal @ShannonWestin It's my understanding that special provisions were made for Medicare to pay for Telehealth during this crisis and insurance companies followed. I hope it continues to be paid for as an option. |
 | Kelly “MIGS Lady” Wright MD @MigsRunner @temkins Definitely had some patients no show their phone call https://t.co/SIF9xYm2aR |
| Tanya Temkin @tanyaltee Tomorrow I have to go to the Kaiser pharmacy to pick up my PARP. They won’t send it by mail. I’m working in that. #gyncsm |
| Debra Hallisey @advocatemomdad RT @ShannonWestin: @ohhiialexa This is where we need advocates and providers to actively educate legislators so we can enact appropriate la… |
| Christina Lizaso @btrfly12 Here's what the FDA has to say so far re: clinical trials during COVID 19 https://t.co/zWot9zR2va but feel like this will just keep changing #gyncsm |
| Bhavana Pothuri @BPothuri Please spread the word to stay home to #flattenthecurve #GYNcsm #SGOCOVID19 |
| Dee Sparacio @womenofteal @beachbound624 @Stigetta @ShannonWestin @SGO_org @GYNCancer Try your local cancer support community such as @CancerSupportNJ . They have an Decisions program to help with treatment decisions #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin Exactly - I worry that we will see patients diagnosed at higher stages because we had to delay diagnostic procedures #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @btrfly12: on the International side #gyncsm International Gynecologic Cancer Society @IGCSociety https://t.co/J5DCTY6Ym0 |
| @AdrienneEcana @KDRichardson924 #gyncsm This is a genuine concern and a conversation that deserves more than the 2min blurb on the news each night!! | |
| Emma Rossi @RobinsonRossiGO RT @womenofteal: Another resource from Livestrong @livestrong Tips and Tools for living with Cancer during Covid-19 https://t.co/tTivEfKSA… |
| Dee Sparacio @womenofteal RT @btrfly12: Practicing self-care during the Time of Coronavirus @JBBC for @power4patients https://t.co/26oqPisk9I #gyncsm #patientchat |
| Sarah Temkin @temkins @KDRichardson924 There are many many people working to make sure this doesn't happen. #clinicaltrials are the key to innovation in oncology and enrolling a representative patient population is good science. #gyncsm. |
| Amanda Nickles Fader, MD @amandanfader This is huge and we hear you loud and clear. We absolutely must address the health disparities that exist in the U.S. related to COVID-19 and other health care conditions. Research studies are ongoing. #gyncsm |
| Dee Sparacio @womenofteal RT @KDRichardson924: #gyncsm As we hear more about the rates of infection/deaths of African Americans with COVID19, I worry we will continu… |
| Annie Ellis @Stigetta @beachbound624 @ShannonWestin @SGO_org @GYNCancer @womenofteal When I was going through my own recurrences, peer support at SHARE helped me understand my treatment options and helped me have better conversations with my medical team about my priorities. https://t.co/CeOjlkwSEW |
| Dee Sparacio @womenofteal RT @ohhiialexa: @ShannonWestin @womenofteal Not okay! Legislation needs to get with the times. This should be a huge lesson that telehealth… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin This is an excellent document with #COVID19 expertise from around the world! @pedroramirezMD @Frumovitz #gyncsm |
| Joshua Kesterson @KestersonJoshua @KDRichardson924 #gyncsm KD, I hope this COVID crisis draws attention to the disparities in outcomes for African-Americans as well as based on economic status, geographic location, etc. and serves as a call for equality for all |
| @AdrienneEcana @KDRichardson924 #gyncsm Is of course why high density cities like New York and New Orleans have been hit so hard. | |
| Dee Sparacio @womenofteal RT @btrfly12: on the International side #gyncsm International Gynecologic Cancer Society @IGCSociety https://t.co/J5DCTY6Ym0 |
| GYN Cancer | #GYNCSM @gyncsm Well we certainly didn't run out of things to talk about on our Covid19 open mic. We hope you were able to make and/or strengthen connections and learn some things. We like to close out chats by sharing TIL: tweet standing for "Today I Learned"... #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Here's what the FDA has to say so far re: clinical trials during COVID 19 https://t.co/zWot9zR2va but feel like this will j… |
| Alexa Jett 🦋 @ohhiialexa @AdrienneEcana @KDRichardson924 100% with you both on this!! Deeply concerned and it has to be discussed/researched. The death and infection rate is ALARMING! #GYNCSM |
| Bhavana Pothuri @BPothuri RT @KestersonJoshua: @KDRichardson924 #gyncsm KD, I hope this COVID crisis draws attention to the disparities in outcomes for African-Ameri… |
| Sarah Temkin @temkins RT @gyncsm: Well we certainly didn't run out of things to talk about on our Covid19 open mic. We hope you were able to make and/or strength… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @KestersonJoshua: @KDRichardson924 #gyncsm KD, I hope this COVID crisis draws attention to the disparities in outcomes for African-Ameri… |
| Annie Ellis @Stigetta RT @KDRichardson924: #gyncsm As we hear more about the rates of infection/deaths of African Americans with COVID19, I worry we will continu… |
| Dee Sparacio @womenofteal @AdrienneEcana @KDRichardson924 Agree 100% . #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @tanyaltee I am sorry they can't make that happen - we are working on these processes and have been able to mail trial drugs out of state! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Special thanks again to @SGO_org for inviting the chairs of SGO’s COVID-19 Task Force to join. Drs. Bhavana Pothuri @BPothuri, Amanda Nickles Fader @amandanfader, and Joshua Kesterson @KestersonJoshua and patient advocate Annie Ellis @stigetta #gyncsm |
| Dee Sparacio @womenofteal RT @KestersonJoshua: @KDRichardson924 #gyncsm KD, I hope this COVID crisis draws attention to the disparities in outcomes for African-Ameri… |
| Annie Ellis @Stigetta RT @KestersonJoshua: @KDRichardson924 #gyncsm KD, I hope this COVID crisis draws attention to the disparities in outcomes for African-Ameri… |
| Annie Ellis @Stigetta RT @amandanfader: This is huge and we hear you loud and clear. We absolutely must address the health disparities that exist in the U.S. re… |
| Dee Sparacio @womenofteal RT @gyncsm: Well we certainly didn't run out of things to talk about on our Covid19 open mic. We hope you were able to make and/or strength… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: Special thanks again to @SGO_org for inviting the chairs of SGO’s COVID-19 Task Force to join. Drs. Bhavana Pothuri @BPothuri,… |
| @AdrienneEcana @KDRichardson924 #gyncsm In light of the high mortality rates, the financial health disparities will also become a factor as they will be faced with paying for costs of burial for those without insurance. | |
| Dee Sparacio @womenofteal RT @gyncsm: Special thanks again to @SGO_org for inviting the chairs of SGO’s COVID-19 Task Force to join. Drs. Bhavana Pothuri @BPothuri,… |
| Inspire @InspireIsHealth RT @btrfly12: on the International side #gyncsm International Gynecologic Cancer Society @IGCSociety https://t.co/J5DCTY6Ym0 |
| Annie Ellis @Stigetta RT @AdrienneEcana: @KDRichardson924 #gyncsm In light of the high mortality rates, the financial health disparities will also become a facto… |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm |
| Dee Sparacio @womenofteal RT @AdrienneEcana: @KDRichardson924 #gyncsm In light of the high mortality rates, the financial health disparities will also become a facto… |
| Christina Lizaso @btrfly12 RT @ShannonWestin: Exactly - I worry that we will see patients diagnosed at higher stages because we had to delay diagnostic procedures #gy… |
| @SteveSmithPlans RT @KDRichardson924: #gyncsm As we hear more about the rates of infection/deaths of African Americans with COVID19, I worry we will continu… | |
| Annie Ellis @Stigetta RT @gyncsm: Special thanks again to @SGO_org for inviting the chairs of SGO’s COVID-19 Task Force to join. Drs. Bhavana Pothuri @BPothuri,… |
| Alexa Jett 🦋 @ohhiialexa @ShannonWestin I’ve thought about this a lot, and it does worry me. I worry about AYA age groups who were due for a yearly check up and now it’s delayed. While most are fine, I think about the ones who might have cancer and their early symptoms are being missed. #GYNCSM |
| Annie Ellis @Stigetta TY @BPothuri @AmandaNFader @KetersonJoshua @SGO_org COVID-19 Task Force @GYNCancer’s for all you are doing for gyn patients during this crisis! #gyncsm |
| Amanda Nickles Fader, MD @amandanfader Thank you for the fantastic discussion! Stay safe, stay at home, and wash your hands! #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk @gyncsm @SGO_org @BPothuri @amandanfader @KestersonJoshua @Stigetta Go Team! Keep it up! #gyncsm |
| @AdrienneEcana @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm This time just goes by way too fast!! | |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone who joined along and shared. Save the date for our next #gyncsm chat: Wed May 13 9pmET discussing Side effects of Surgery/Hysterectomy. Wishing wellness and safety for all. |
| Emma Rossi @RobinsonRossiGO @AdrienneEcana @KDRichardson924 And no, we shouldn’t wait to address this when it’s all over, as some suggest. We should tackle it now. We should recognize there are certain communities that are in greater need for resources, testing, access now. Should not accept these worse outcomes are inevitable. #gyncsm |
| Annie Ellis @Stigetta RT @womenofteal: @beachbound624 @Stigetta @ShannonWestin @SGO_org @GYNCancer Try your local cancer support community such as @CancerSuppor… |
| Tanya Temkin @tanyaltee Maybe I can help change this policy. Ive already been contacted by Kaiser’s member services and my concern has been “Escalated” #gyncsm |
| Dee Sparacio @womenofteal Appreciate the information shared by @BPothuri , @KestersonJoshua @amandanfader . We hope you will stop by one of our future #gyncsm chats you are always welcome! |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @womenofteal @btrfly12 @temkins @journeycancer @DrBeckerSchutte Grateful for Dee and Christina!!! #gyncsm |
| Erica Bednar @EMBOSU TIL that the #gyncsm community is navigating similar fears, uncertainty, ever-changing guidelines, and new barriers to healthcare acess/delivery -- not alone, but together. #gyncsm Stay safe, friends! |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks to everyone who joined along and shared. Save the date for our next #gyncsm chat: Wed May 13 9pmET discussing Side eff… |
| Bhavana Pothuri @BPothuri Thanks for having us. Please know the #SGOCOVID19 TF is here to continually work to improve the care of our patients during this challenging time. Please know we are all here for you. #GYNcsm |
| Amanda Crowell Itliong @MIShouldTalk @Stigetta @BPothuri @amandanfader @SGO_org @GYNCancer Thanks for repping us Annie! #gyncsm |
| Alexa Jett 🦋 @ohhiialexa [REDACTED USER] Awwwww! That’s so nice! 🥰❤️ #GYNCSM |
| Joshua Kesterson @KestersonJoshua @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm has it been an hour already? sign of good time. flew by. thanks for allowing us into your tweetchat. honored |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @BPothuri: Thanks for having us. Please know the #SGOCOVID19 TF is here to continually work to improve the care of our patients during t… |
| Annie Ellis @Stigetta RT @BPothuri: Thanks for having us. Please know the #SGOCOVID19 TF is here to continually work to improve the care of our patients during t… |
| Sarah Temkin @temkins @ShannonWestin @womenofteal @btrfly12 @journeycancer @DrBeckerSchutte Totally. Stay safe. |
| Alexa Jett 🦋 @ohhiialexa @tanyaltee You go for it!!! #GYNCSM |
| @SteveSmithPlans RT @amandanfader: Si, por supuesto! I agree wholeheartedly. Interpreter services at many urban hospitals across U.S. are ramping up to acco… | |
| Dee Sparacio @womenofteal @AdrienneEcana @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte It sure did fly by. Glad to spend time with some many interested in improving the gy cancer patient experience around COVID-19 and beyond #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin Thanks to everyone for your contributions tonight! Please stay safe and stay home if you can!! xoxo #gyncsm |
 | Cire @tragure #gyncsm |
| Dee Sparacio @womenofteal RT @RobinsonRossiGO: @AdrienneEcana @KDRichardson924 And no, we shouldn’t wait to address this when it’s all over, as some suggest. We shou… |
| Alexa Jett 🦋 @ohhiialexa RT @EMBOSU: TIL that the #gyncsm community is navigating similar fears, uncertainty, ever-changing guidelines, and new barriers to healthca… |
| Christina Lizaso @btrfly12 It was so great to see so many new faces. Those doing a tweet chat for their first time - you did great! Hope to tweet along with you again. #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: TIL that the #gyncsm community is navigating similar fears, uncertainty, ever-changing guidelines, and new barriers to healthca… |
 | Vaidehi Mujumdar, MD @VeeMuj RT @amandanfader: This is huge and we hear you loud and clear. We absolutely must address the health disparities that exist in the U.S. re… |
| @TLHagan RT @btrfly12: Practicing self-care during the Time of Coronavirus @JBBC for @power4patients https://t.co/26oqPisk9I #gyncsm #patientchat | |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @womenofteal: Appreciate the information shared by @BPothuri , @KestersonJoshua @amandanfader . We hope you will stop by one of our futu… |
| Dee Sparacio @womenofteal RT @BPothuri: Thanks for having us. Please know the #SGOCOVID19 TF is here to continually work to improve the care of our patients during t… |
| Sarah Temkin @temkins RT @btrfly12: It was so great to see so many new faces. Those doing a tweet chat for their first time - you did great! Hope to tweet along… |
| Christina Lizaso @btrfly12 RT @BPothuri: Thanks for having us. Please know the #SGOCOVID19 TF is here to continually work to improve the care of our patients during t… |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: Thanks to everyone who joined along and shared. Save the date for our next #gyncsm chat: Wed May 13 9pmET discussing Side eff… |
| Sarah Temkin @temkins RT @ShannonWestin: Thanks to everyone for your contributions tonight! Please stay safe and stay home if you can!! xoxo #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: TIL that the #gyncsm community is navigating similar fears, uncertainty, ever-changing guidelines, and new barriers to healthca… |
| Dee Sparacio @womenofteal RT @btrfly12: It was so great to see so many new faces. Those doing a tweet chat for their first time - you did great! Hope to tweet along… |
| Joshua Kesterson @KestersonJoshua @btrfly12 #gyncsm Til next time? @BPothuri , @amandanfader |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Sarah Temkin @temkins RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Dee Sparacio @womenofteal Till next month - Stay well Teal Sisters, healthcare providers and caregivers. #gyncsm |
| Tanya Temkin @tanyaltee Well thanks to all for the resources and motivation! See y’all on social media. And happy Passover to all who celebrate. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. Check our blog https://t.co/oAfi7Me49e for the chat summary with link to the full transcript and the resources shared. |
| Sarah Temkin @temkins RT @tanyaltee: Well thanks to all for the resources and motivation! See y’all on social media. And happy Passover to all who celebrate. #gy… |
| Dee Sparacio @womenofteal Thanks to my Teal sister and friend Annie Ellis @stigetta for all her great advocacy work and for joining us tonight. #gyncsm |
| Dee Sparacio @womenofteal RT @tanyaltee: Well thanks to all for the resources and motivation! See y’all on social media. And happy Passover to all who celebrate. #gy… |
| Dee Sparacio @womenofteal @KestersonJoshua @btrfly12 @BPothuri @amandanfader Did great ! Thanks again. #gyncsm |
| Dee Sparacio @womenofteal My fingers are very tired right now. And that is a good thing. Thanks to all who joined in and to @btrfly12 for being an awesome chat/ community partner . #gyncsm |
| Bhavana Pothuri @BPothuri RT @KestersonJoshua: Goal is to keep patients safe and in this current crisis, that involves avoiding an infection with no cure. SGO COVID… |
 | IamCervivor @IamCervivor RT @btrfly12: As far as the emotional side of all of this. Enjoyed these patient perspectives: @nancyspoint https://t.co/sBSBQnsSMK Annie… |
| Dee Sparacio @womenofteal @Mimiinmendon Thanks for joining us tonight. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: Thanks to my Teal sister and friend Annie Ellis @stigetta for all her great advocacy work and for joining us tonight. #gy… |
#GynCSM content from Twitter.