#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | National Ovarian Cancer Coalition @NOCC_National See you shortly at the #gyncsm virtual health fair! #KnowOvarian @gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | AliveAndKickn @Alive_And_Kickn @btrfly12 @RossFH @Brittdavidsonmd @IshwariaMD @CassidyFish2 @HeidiSDonovan [REDACTED USER] @NancysPoint @teaminspire @JBBC @cancerassassin1 It's time #gyncsm |
 | Patient Empowerment Network @power4patients RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | ECANA @ECANAwomen #gyncsm Hi Everyone, I am Adrienne Moore @AdrienneEcana, a stage III endometrial cancer survivor and I am tweeting on behalf of the Endometrial Cancer Action Network for African Americans. Grateful to be here!! |
 | advovarianca_hu @advovarianca_hu https://t.co/pTSSinbBH9 is an online community designed to be a safe space for anyone living with or affected by ovarian cancer. Along with informational resources, this is a place for you to connect with others and find the support you deserve. #gyncsm |
| @elixirfund Hello, Meg from the Elixir Fund an organization dedicated to improving the comfort & care of cancer patients & caregivers. #gyncsm | |
| Patient Empowerment Network @power4patients Hi #gyncsm, I’m Kara from Patient Empowerment Network (PEN). PEN's mission is to fortify cancer patients and care partners with the knowledge and tools to boost their confidence and put them in control of their care so they best, most personalized care available. |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer care. I’ll be moderating as @gyncsm today. So thankful for all taking time to share with us - so many great people passionate about supporting patients #gyncsm |
| @AliveAndKicknDD RT @gyncsm: Please share: The next #gyncsm monthly chat re: gynecologic cancers is today, Wed May 11th, at 8pmET. We're hosting a Digital… | |
 | SHARE Cancer Support @SHARECancerSupt SHARE is a national nonprofit that supports, educates, and empowers anyone who has been diagnosed with women’s cancers. Learn more and connect with our community of knowledgeable survivors, women living with cancer, and healthcare professionals at https://t.co/u78nMdGerT #gyncsm |
| AliveAndKickn @Alive_And_Kickn It's Robin from AliveAndKickn. AliveAndKickn’s mission is to improve the lives of individuals and families impacted by Lynch syndrome and associated cancers through research, education and screening. Thank you for inviting us to participate in today’s #gyncsm #gyncsm |
 | IamCervivor @IamCervivor Hi Everyone! My name is Morgan, I'm a metastatic and recurrent #CervicalCancer survivor and I serve as the Community Engagement Liaison for #Cervivor. I'll be tweeting on behalf of the organization tonight. #GYNCSM |
 | Cancer Hope Network @CancerHopeNet Hi everyone! Sarah from Cancer Hope Network - providing peer mentoring and support for patients and caregivers. #gyncsm |
 | Tobey @BRCAinfo Hi everyone. Hope you are all well. Here to support & learn & share. #gyncsm |
 | Stupid Cancer @StupidCancer RT @gyncsm: The #gyncsm (GYNecologic Cancer Social Media) chat will get started in a few minutes! You can read about tonight’s Digital Hea… |
 | Mutant Strong @IrinaBrooke1 #gyncsm Hi I’m Irina Brooke. BRCA2 mutant. Patient advocate. |
 | Cancer Nation @CancerAdvocacy Founded by and for cancer survivors in 1986, NCCS created the widely accepted definition of "survivorship." We define someone as a cancer survivor from the time of diagnosis through the balance of life. #gyncsm https://t.co/TRBcqZAuEy |
| Dee Sparacio @womenofteal Dee here! Dx with #ovca Stage3B 2005, recurrence 2008, Ovarian Cancer research advocate, blogger, co-Author of “100 Questions and Answers about Ovarian cancer” & co-moderator #gyncsm |
 | CancerDotNet @CancerDotNet @gyncsm We're https://t.co/z7njHqlfPw, @ASCO's patient education resource. Our site provides information and resources for people with cancer and their caregivers, that is easy to understand and comprehensive. Thank you for hosting this event! #gyncsm |
 | SGO @SGO_org Hello #gyncsm! The mission of the Society of Gynecologic Oncology @SGO_org is to prevent and treat gyn cancers with equity; improving lives through advocacy, engagement, education, research and collaboration. |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
| National Ovarian Cancer Coalition @NOCC_National Hey all, I’m Stephanie with the National Ovarian Cancer Coalition. Excited to be here tonight and share some great #ovariancancer resources! #KnowOvarian #gyncsm |
| Patient Empowerment Network @power4patients Our programs enhance patient health literacy to enable shared decision-making and provide informational and educational resources to empower patients and care partners at every step of their cancer journey. You can find us here: https://t.co/kopOrXnfPD #gyncsm |
 | Uterine Cancer Awareness Network @ucan2020 Uterine Cancer Awareness Network is an IRS-approved 501c3 dedicated to raising public awareness regarding uterine/endometrial cancer with a strong focus on underserved communities. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @CancerAdvocacy: Founded by and for cancer survivors in 1986, NCCS created the widely accepted definition of "survivorship." We define s… |
 | Tamika Felder @tamikafelder RT @gyncsm: If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you a… |
| @AliveAndKicknDD RT @SGO_org: We are about to participate in the #gyncsm (GYNecologic Cancer Social Media) tweet chat as part of their Digital Health Fair,… | |
| Dee Sparacio @womenofteal RT @gyncsm: If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you a… |
 | Cancer and Careers @CancerAndCareer Cancer and Careers empowers & educates people with any kind of cancer to thrive in any kind of job, by providing expert advice, interactive tools & educational events. All of our programming is offered 100% free of charge to patients and survivors. #gyncsm #bethebossovercancer |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their experiences and perspectives. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their exp… |
| @AliveAndKicknDD RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. | |
| @RobinSmrtPtient Robin Martinez, coordinating the https://t.co/WC18aFzajs online communities. Smart Patients is like a caring family. Women share posts with other patients who understand their cancer, providing guidance, emotional support, news of research, and available trials. #gyncsm | |
| @AliveAndKicknDD RT @Alive_And_Kickn: It's Robin from AliveAndKickn. AliveAndKickn’s mission is to improve the lives of individuals and families impacted by… | |
| Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
| CancerDotNet @CancerDotNet RT @CancerAndCareer: Cancer and Careers empowers & educates people with any kind of cancer to thrive in any kind of job, by providing exper… |
| CancerDotNet @CancerDotNet RT @ucan2020: Uterine Cancer Awareness Network is an IRS-approved 501c3 dedicated to raising public awareness regarding uterine/endometrial… |
| AliveAndKickn @Alive_And_Kickn Women with Lynch syndrome hereditary cancer gene mutations are at high risk for several different gyn cancers. Learn more https://t.co/p3o9FI1lX1 and https://t.co/wO9CeMdiz9 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm (Explore, Latest) and include it in every tweet during the next hour to engage with others about this topic. |
| Dee Sparacio @womenofteal RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm (Explore, Latest) and include it in every tweet during the next hour to enga… |
| National Ovarian Cancer Coalition @NOCC_National Hey there! We are the NOCC. Our #mission is to save lives through the prevention and cure of #ovariancancer and to improve quality of life for survivors and their caregivers. https://t.co/42H5oqkwmw #KnowOvarian #gyncsm |
| Patient Empowerment Network @power4patients RT @CancerAndCareer: Cancer and Careers empowers & educates people with any kind of cancer to thrive in any kind of job, by providing exper… |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information. #gyncsm |
| Stupid Cancer @StupidCancer Stupid Cancer is a 501(c)3 nonprofit organization whose mission is to help empower everyone affected by AYA cancer by ending isolation and building community. Check our website is https://t.co/M4pF8JcERN! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We are so grateful for all the organizations and advocates taking time to join us this evening. We also welcome all those “listening in”. You can always tweet, DM or email us with questions/comments after the chat is over. https://t.co/XYaP3OTgsG #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/person… |
| CancerDotNet @CancerDotNet RT @StupidCancer: Stupid Cancer is a 501(c)3 nonprofit organization whose mission is to help empower everyone affected by AYA cancer by end… |
| Dee Sparacio @womenofteal So glad to see so many joining us for tonights #gyncsm Digital Health Fair . Welcome! |
| @AliveAndKicknDD RT @Alive_And_Kickn: Women with Lynch syndrome hereditary cancer gene mutations are at high risk for several different gyn cancers. Learn m… | |
| GYN Cancer | #GYNCSM @gyncsm Today’s #gyncsm chat is a little different as we are holding our 2nd Digital Health Fair of organizations providing information and support for those impacted by gynecologic cancer and/or all cancers. We’ll start with a couple questions and then allow each organization to share. |
| Dee Sparacio @womenofteal RT @gyncsm: We are so grateful for all the organizations and advocates taking time to join us this evening. We also welcome all those “li… |
| Dee Sparacio @womenofteal Thank you to all who have tweeted valuable information to our community during the past month using the #gyncsm hashtag and those who helped promote tonight's chat. |
| Cancer Hope Network @CancerHopeNet Terrific reminder! #Peersupport is a supplement to your oncology team. #strongertogether #gyncsm |
 | Gary L. Thompson @garyleethompson @btrfly12 Been a while… peeking in on my friends at #gyncsm |
| @AliveAndKicknDD RT @CancerHopeNet: It's almost here! See you in a few minutes. #gyncsm | |
| GYN Cancer | #GYNCSM @gyncsm As moderator, I’ll introduce 2 Topic Questions (T1:, T2:) and then move into the Digital Health Fair. Please include the corresponding T# at the front of your comment or answer. We also end our chats with a chance to share TIL: thoughts standing for “Today I Learned”. #gyncsm |
| Patient Empowerment Network @power4patients RT @CancerHopeNet: Terrific reminder! #Peersupport is a supplement to your oncology team. #strongertogether #gyncsm |
 | Ann Becker-Schutte @DrBeckerSchutte Hello #gyncsm, I’m Ann Becker-Schutte, a Kansas City psychologist, advocate of #wholepersonhealthcare and currently a refugee from the sudden arrival of summer. |
| @AliveAndKicknDD RT @CancerAndCareer: Cancer and Careers empowers & educates people with any kind of cancer to thrive in any kind of job, by providing exper… | |
| Dee Sparacio @womenofteal RT @gyncsm: As moderator, I’ll introduce 2 Topic Questions (T1:, T2:) and then move into the Digital Health Fair. Please include the corres… |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: Thank you to all who have tweeted valuable information to our community during the past month using the #gyncsm hashtag an… |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: Today’s #gyncsm chat is a little different as we are holding our 2nd Digital Health Fair of organizations providing information… |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: We are so grateful for all the organizations and advocates taking time to join us this evening. We also welcome all those “li… |
| GYN Cancer | #GYNCSM @gyncsm You can find more information about tonight’s #gyncsm discussion and Digital Health Fair on our blog: https://t.co/HYnDV7x7x9 Topic 1 and 2 about to come.... |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm (Explore, Latest) and include it in every tweet during the next hour to enga… |
| @AliveAndKicknDD RT @SHAREing: SHARE is a national nonprofit that supports, educates, and empowers anyone who has been diagnosed with women’s cancers. Learn… | |
 | Mary Beth Collins @marb1111 RT @CancerAdvocacy: Founded by and for cancer survivors in 1986, NCCS created the widely accepted definition of "survivorship." We define s… |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: You can find more information about tonight’s #gyncsm discussion and Digital Health Fair on our blog: https://t.co/HYnDV7x7x9… |
 | Sarah Cassidy @CassidyFish2 So many of my @CancerHopeNet booth buddies - like @StupidCancer! - taking part in tonight's #gyncsm health fair. |
| Dee Sparacio @womenofteal RT @gyncsm: You can find more information about tonight’s #gyncsm discussion and Digital Health Fair on our blog: https://t.co/HYnDV7x7x9… |
| Uterine Cancer Awareness Network @ucan2020 We have our “Abnormal Bleeding Is Not Normal” campaign. We are putting free laminated awareness posters in any gynecology office in the U.S. Please contact us at https://t.co/f0PozYTSWL #gyncsm |
| Tobey @BRCAinfo RT @gyncsm: You can find more information about tonight’s #gyncsm discussion and Digital Health Fair on our blog: https://t.co/HYnDV7x7x9… |
| Christina Lizaso @btrfly12 @garyleethompson always lovely to "see" you Gary - thanks for stopping by :) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T1: What kinds of information and support do you, your loved one, or those you support find to be most needed during diagnosis, treatment, and on-going? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T1: What kinds of information and support do you, your loved one, or those you support find to be most needed during diagnosis,… |
 | Bryan Bishop @BaldBryan RT @StupidCancer: Stupid Cancer is a 501(c)3 nonprofit organization whose mission is to help empower everyone affected by AYA cancer by end… |
| Dee Sparacio @womenofteal RT @gyncsm: T1: What kinds of information and support do you, your loved one, or those you support find to be most needed during diagnosis,… |
| Patient Empowerment Network @power4patients RT @gyncsm: T1: What kinds of information and support do you, your loved one, or those you support find to be most needed during diagnosis,… |
| @elixirfund T1: I find that those that reach out to us are just grateful for a response and someone to listen #gyncsm | |
| CancerDotNet @CancerDotNet We strive to educate, support, and help people with cancer and their loved ones with trusted, expert-reviewed information and resources. We're marking #20years of providing #CancerEducation as @ASCO's #PatientEducation resource! https://t.co/ceWeswll9d #gyncsm |
| Patient Empowerment Network @power4patients T1: I think the kind/type of information and support needed is not one size fits all and can also change along the way, but I always found hearing other patients' stories to be helpful #gyncsm |
| Dee Sparacio @womenofteal T1 During diagnosis, treatment, and to this day I look for support for side effects and scanxiety . #gyncsm |
| Christina Lizaso @btrfly12 T1: At first I see a big need to not feel alone. Also a competing desire to learn all you can but also not wanting to overwhelm yourself. #gyncsm |
| @RobinSmrtPtient https://t.co/WC18aFzajs's topics include cervical, endometrial, fallopian tube, ovarian, vaginal, and vulvar cancers; Sertoli Leydig tumor; gynecological cancer; HIPEC; intimacy and sex; BRCA and other mutations; insurance; SSDI; Medicare; and much more. #gyncsm | |
| Tobey @BRCAinfo @gyncsm T1. Treatment options & talking to Patients who are going through the same thing as you are. HOPE #gyncsm |
| CancerDotNet @CancerDotNet Content on https://t.co/z7njHqlfPw is written so that it's easy to understand & remember. Check out our mobile app, with features like symptom tracking and medication log, our videos and podcasts, and our social channels here and on Facebook https://t.co/RmUMpDAL0t #gyncsm |
| IamCervivor @IamCervivor A1: I had some of the BEST support when I went through both of my treatments for #cervicalcancer but I didn't feel like anyone truly "got it" on an emotional level until I found a community like #Cervivor after treatment. #GYNCSM |
| Uterine Cancer Awareness Network @ucan2020 T1 I find that uterine cancer patients and survivors require lots of information because the majority of those that reach out to us have received very little information specific to uterine/endometrial cancer. mental and emotional support #gyncsm |
| Dee Sparacio @womenofteal Exactly! #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte T1: One resource I hear many folks talk about is the value of a “designated listener” at doctor’s appointments—someone who can gather information when your brain might be frozen. #gyncsm |
| CancerDotNet @CancerDotNet T1: A diagnosis of #GynecologicCancer can provoke many thoughts and questions. Our disease-specific guides provide vetted info about navigating diagnosis, treatment, finding support, and survivorship care https://t.co/1MVlOwRIay #gyncsm |
 | Ovarcome @ovarcome RT @womenofteal: #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and h… |
| Dee Sparacio @womenofteal RT @BRCAinfo: @gyncsm T1. Treatment options & talking to Patients who are going through the same thing as you are. HOPE #gyncsm |
 | Suzie Siegel @SuzieSiegel T1. I think women with gyn sarcomas often need to find others with the same diagnosis. Because of the rarity of sarcoma, it's unlikely they will know anyone who has gone through it. #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: T1: One resource I hear many folks talk about is the value of a “designated listener” at doctor’s appointments—someone… |
| Christina Lizaso @btrfly12 RT @IamCervivor: A1: I had some of the BEST support when I went through both of my treatments for #cervicalcancer but I didn't feel like an… |
| Dee Sparacio @womenofteal RT @IamCervivor: A1: I had some of the BEST support when I went through both of my treatments for #cervicalcancer but I didn't feel like an… |
| CancerDotNet @CancerDotNet RT @womenofteal: Exactly! #gyncsm |
| Dee Sparacio @womenofteal RT @ucan2020: T1 I find that uterine cancer patients and survivors require lots of information because the majority of those that reach out… |
| CancerDotNet @CancerDotNet RT @ucan2020: T1 I find that uterine cancer patients and survivors require lots of information because the majority of those that reach out… |
| ECANA @ECANAwomen #gyncsm T1, initially mostly emotional. But as treatment got more intense, all modes of physical support were vital to my ADL |
| Ann Becker-Schutte @DrBeckerSchutte T1: I always have to put in a plug for the value of getting solid emotional support: from a friend, religious leader or mental health professional. #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: T1: One resource I hear many folks talk about is the value of a “designated listener” at doctor’s appointments—someone… |
| IamCervivor @IamCervivor RT @CancerDotNet: T1: A diagnosis of #GynecologicCancer can provoke many thoughts and questions. Our disease-specific guides provide vetted… |
| CancerDotNet @CancerDotNet RT @IamCervivor: A1: I had some of the BEST support when I went through both of my treatments for #cervicalcancer but I didn't feel like an… |
| Christina Lizaso @btrfly12 Reminder to included #gyncsm :) " @ECANAwomen T1: Mental, Emotional, Physical, and Financial." |
| Dee Sparacio @womenofteal RT @SuzieSiegel: T1. I think women with gyn sarcomas often need to find others with the same diagnosis. Because of the rarity of sarcoma, i… |
| AliveAndKickn @Alive_And_Kickn T1: for our hereditary cancer community a lot of it is about understand what kind of annual cancer screenings are needed and how to talk to your family and especially your children. #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 T2 I attend and we offer virtual online support groups. They are easier to find and safer. We plan on starting in-person support as soon as we get more participation #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: Exactly! #gyncsm |
| Dee Sparacio @womenofteal RT @Alive_And_Kickn: T1: for our hereditary cancer community a lot of it is about understand what kind of annual cancer screenings are need… |
| SGO @SGO_org T1: It is very important for a gyn cancer patient to be treated by a gynecologic oncologist. Patients can look up gyn cancer practitioners in their area through the https://t.co/B5n3t5cnZW Seek a Specialist link https://t.co/ZqwGXLFwA7 #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @ECANAwomen: #gyncsm T1, initially mostly emotional. But as treatment got more intense, all modes of physical support were vital to my A… |
| Dee Sparacio @womenofteal RT @SGO_org: T1: It is very important for a gyn cancer patient to be treated by a gynecologic oncologist. Patients can look up gyn cancer p… |
| IamCervivor @IamCervivor RT @SGO_org: T1: It is very important for a gyn cancer patient to be treated by a gynecologic oncologist. Patients can look up gyn cancer p… |
| Christina Lizaso @btrfly12 T1: I think this is big because all along the cancer experience even the same person may have different needs. That's why is so great that there are lots of options and resources. They compliment and fill different needs. #gyncsm |
| Tobey @BRCAinfo RT @Alive_And_Kickn: T1: for our hereditary cancer community a lot of it is about understand what kind of annual cancer screenings are need… |
| GYN Cancer | #GYNCSM @gyncsm T2: For peer and emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm |
 | Susannah Koontz, PharmD, BCOP 🎗 @KoontzOncology RT @StupidCancer: Stupid Cancer is a 501(c)3 nonprofit organization whose mission is to help empower everyone affected by AYA cancer by end… |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: T2: For peer and emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm |
| Sarah Cassidy @CassidyFish2 Yes!!! And a notebook (or @bagitcancer bag?!) to keep track of all the information. As a #caregiver, my purse notebook went everywhere - and came in handy so very many times. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2: For peer and emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm |
| Dee Sparacio @womenofteal RT @ucan2020: T2 I attend and we offer virtual online support groups. They are easier to find and safer. We plan on starting in-person supp… |
| Gary L. Thompson @garyleethompson @btrfly12 Thinking of the power of teal. “The color of mortality & renewal.” May the beauty of this color infuse each of you. For those that don’t know my story. I am a widower. Still deeply in love with Maureen who passed of #mbc on 10.21.2014. #sheismywhy https://t.co/5twwOtSmlU #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @SuzieSiegel: T1. I think women with gyn sarcomas often need to find others with the same diagnosis. Because of the rarity of sarcoma, i… |
| GYN Cancer | #GYNCSM @gyncsm RT @DrBeckerSchutte: T1: One resource I hear many folks talk about is the value of a “designated listener” at doctor’s appointments—someone… |
| Dee Sparacio @womenofteal T2 I find support groups very helpful. No one understands like another survivor. I attend online groups that used to be in-person. But found one-on-one helpful when I was initially dx. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @ucan2020: T1 I find that uterine cancer patients and survivors require lots of information because the majority of those that reach out… |
 | Lindsey McAlarnen, MD, FACOG @LAMcAlarnenMD @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm hi all! I am Lindsey, gyn onc fellow in Milwaukee, WI. Happy to be here and listen along to be able to share with colleagues and my patients |
| @elixirfund T2: We offer Cancer Thriving & Surviving (developed at Stanford) both virtually & in person (in NJ specifically #gyncsm | |
| Patient Empowerment Network @power4patients RT @gyncsm: T2: For peer and emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not? #gyncsm |
| @ RT @LAMcAlarnenMD: @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm hi all! I am Lindsey, gyn… | |
| Dee Sparacio @womenofteal @LAMcAlarnenMD @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi Lindsey Welcome. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte @LAMcAlarnenMD @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer Nice to meet you!#gyncsm |
| Dee Sparacio @womenofteal Yup and Excellent program! #gyncsm |
| SHARE Cancer Support @SHARECancerSupt @gyncsm T1: The support of someone who has been there and knowing they're not alone. Those diagnosed can call our Helpline or join one of our support groups! #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 RT @SGO_org: T1: It is very important for a gyn cancer patient to be treated by a gynecologic oncologist. Patients can look up gyn cancer p… |
| Christina Lizaso @btrfly12 T2: I'm all about virtual, though I did get more than I thought I would out of attending an in-person @FacingOurRisk meeting years ago. #gyncsm |
| ECANA @ECANAwomen #gyncsm I attend mostly virtual groups however the SISTER Study recently held a Summit in Seattle and I had the pleasure of meeting 12 of my closest friends IRL for the first time. All of us, Black endometrial cancer survivors!! |
| IamCervivor @IamCervivor A2: #Cervivor hosts a monthly virtual support group to reach our community. It's one of the easiest ways to connect. On a personal note, I get involved with other community partners here locally to expand my emotional and peer support too. #GYNCSM |
| Tobey @BRCAinfo @gyncsm For me the support began at my doctors office. Then online to “meet” people with my condition. Lasting friendships made & now private calls. #gyncsm |
| National Ovarian Cancer Coalition @NOCC_National NOCC’s Teal Hearts Network, a regional peer-to-peer online support group, allows you to connect with other #ovariancancer survivors for the emotional support needed to navigate this journey. https://t.co/GhHEU8c3Sg #KnowOvarian #gyncsm |
| Suzie Siegel @SuzieSiegel T1. Although my primary oncologist is a gyn onc, women with gyn #leiomyosarcoma also may want to see a medical oncologist who specializes in #sarcoma. #gyncsm |
| Ovarcome @ovarcome To raise global awareness, to fund research, and to provide financial, psycho-social & informational support to Ovarcomers 💙. We are inspired by the simple philosophy of support, love & celebration of life. Together #WeOvarcome! #gyncsm https://t.co/khvB0BEm5K https://t.co/BDMLg78PJ8 |
| CancerDotNet @CancerDotNet RT @elixirfund: T2: We offer Cancer Thriving & Surviving (developed at Stanford) both virtually & in person (in NJ specifically #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T2: I'm all about virtual, though I did get more than I thought I would out of attending an in-person @FacingOurRisk meeting… |
| Patient Empowerment Network @power4patients @elixirfund Will have to check this out! #gyncsm |
| Christina Lizaso @btrfly12 T2: I think it is important to find a group you really connect with. It might be an all-cancer group or other kinds of grouping than your exact cancer. And you could do a peer 1-1 but also be in a different organized group like by age. #gyncsm |
| Tobey @BRCAinfo @garyleethompson @btrfly12 So Beautiful #gyncsm |
| Dee Sparacio @womenofteal RT @ECANAwomen: #gyncsm I attend mostly virtual groups however the SISTER Study recently held a Summit in Seattle and I had the pleasure o… |
| Tobey @BRCAinfo RT @garyleethompson: @btrfly12 Thinking of the power of teal. “The color of mortality & renewal.” May the beauty of this color infuse each… |
| Dee Sparacio @womenofteal RT @IamCervivor: A2: #Cervivor hosts a monthly virtual support group to reach our community. It's one of the easiest ways to connect. On a… |
| GYN Cancer | #GYNCSM @gyncsm Thanks all! Now it is time for our Digital Health Fair! #gyncsm |
| @ RT @SuzieSiegel: T1. Although my primary oncologist is a gyn onc, women with gyn #leiomyosarcoma also may want to see a medical oncologist… | |
| Dee Sparacio @womenofteal RT @NOCC_National: NOCC’s Teal Hearts Network, a regional peer-to-peer online support group, allows you to connect with other #ovariancance… |
| Dee Sparacio @womenofteal RT @BRCAinfo: @gyncsm For me the support began at my doctors office. Then online to “meet” people with my condition. Lasting friendships ma… |
| GYN Cancer | #GYNCSM @gyncsm (1/2) We have a number of organizations that support women impacted by gyn cancers and their caregivers. We will roughly go in alpha order by twitter handle. Some overlap is okay. We'll figure it out together as we go :) #gyncsm |
| @ RT @IamCervivor: A2: #Cervivor hosts a monthly virtual support group to reach our community. It's one of the easiest ways to connect. On a… | |
| CancerDotNet @CancerDotNet RT @NOCC_National: NOCC’s Teal Hearts Network, a regional peer-to-peer online support group, allows you to connect with other #ovariancance… |
| GYN Cancer | #GYNCSM @gyncsm (2/2) Alphabetically by handle, we ask each org to share 3-6 tweets highlighting mission/website, resources/programs, and key awareness messages. #gyncsm |
| CancerDotNet @CancerDotNet RT @IamCervivor: A2: #Cervivor hosts a monthly virtual support group to reach our community. It's one of the easiest ways to connect. On a… |
 | ASCO @ASCO @womenofteal Sincere thank you for your time & contributions! |
| Dee Sparacio @womenofteal RT @btrfly12: T2: I think it is important to find a group you really connect with. It might be an all-cancer group or other kinds of groupi… |
| Dee Sparacio @womenofteal RT @gyncsm: (1/2) We have a number of organizations that support women impacted by gyn cancers and their caregivers. We will roughly go in… |
| Dee Sparacio @womenofteal RT @gyncsm: (2/2) Alphabetically by handle, we ask each org to share 3-6 tweets highlighting mission/website, resources/programs, and key a… |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: Thanks all! Now it is time for our Digital Health Fair! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @SuzieSiegel: T1. Although my primary oncologist is a gyn onc, women with gyn #leiomyosarcoma also may want to see a medical oncologist… |
| advovarianca_hu @advovarianca_hu Our mission is to provide those impacted by ovarian cancer with a space to find information, share experiences, and connect with others who understand. Join our community: https://t.co/O4CsYLB82M. #gyncsm |
| advovarianca_hu @advovarianca_hu You can find us on our website, https://t.co/pTSSintcyH, on Instagram, @advancedovariancancer, on Twitter, @advovarianca_hu, and on Facebook at AdvancedOvarianCancerHU #gyncsm |
| advovarianca_hu @advovarianca_hu https://t.co/pTSSinbBH9 offers first-hand articles written by our patient leaders living with ovarian cancer, stories shared by community members, and opportunities to connect with others in our forums. #gyncsm |
 | Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN T1 @NOCC_National has TealCares, a monthly professionally moderated #caregiver support group. #gyncsm |
| advovarianca_hu @advovarianca_hu Share your ovarian cancer story https://t.co/yo11pgDiZg or connect with others in our forums https://t.co/UHRuwJ7v5b. #gyncsm |
| advovarianca_hu @advovarianca_hu Ovarian cancer is often misdiagnosed or dismissed as a result of HCPs not listening to women’s pain. It’s important for women to listen to their bodies and advocate for themselves. #gyncsm |
| Dee Sparacio @womenofteal RT @advovarianca_hu: Our mission is to provide those impacted by ovarian cancer with a space to find information, share experiences, and co… |
 | Amanda Crowell Itliong @MIShouldTalk RT @SGO_org: T1: It is very important for a gyn cancer patient to be treated by a gynecologic oncologist. Patients can look up gyn cancer p… |
| Dee Sparacio @womenofteal RT @advovarianca_hu: You can find us on our website, https://t.co/pTSSintcyH, on Instagram, @advancedovariancancer, on Twitter, @advovarian… |
| GYN Cancer | #GYNCSM @gyncsm A's are sharing now and C's are "on deck" #gyncsm |
| AliveAndKickn @Alive_And_Kickn T2: There is an emotional connection you can make with others going through the same things you are that can happen much easier at small in-person gatherings #gyncsm |
| Dee Sparacio @womenofteal RT @advovarianca_hu: https://t.co/pTSSinbBH9 offers first-hand articles written by our patient leaders living with ovarian cancer, stories… |
| Dee Sparacio @womenofteal RT @advovarianca_hu: Share your ovarian cancer story https://t.co/yo11pgDiZg or connect with others in our forums https://t.co/UHRuwJ7v5b.… |
| Dee Sparacio @womenofteal RT @advovarianca_hu: Ovarian cancer is often misdiagnosed or dismissed as a result of HCPs not listening to women’s pain. It’s important fo… |
| Dee Sparacio @womenofteal RT @gyncsm: A's are sharing now and C's are "on deck" #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 UCAN is making sure everyone with a uterus knows that uterine cancer exists, and our PAP is not a screening/testing method for the disease you must know what to look for and tell your gynecologist! #gyncsm |
| AliveAndKickn @Alive_And_Kickn In partnership with @ColonCancerCoal, we will be hosting the 2022 Living with Lynch Patient Workshop in Boston Sept 15-18th. You can apply to be considered here, https://t.co/wO9CeMdiz9 #gyncsm |
| Suzie Siegel @SuzieSiegel T2. There's no local support group for my type of cancer. But I participate on LMSDR's FB page and in its webinars. I'm made friends with many people with #leiomyosarcoma. #gyncsm |
| Christina Lizaso @btrfly12 T2: I really found a good fit with @smart_patients for online peer support and wish I could my CHEK2 folks there, because don't love FB groups. #gyncsm |
| National Ovarian Cancer Coalition @NOCC_National Are you an #ovariancancer caregiver? NOCC's Teal Cares Network is a virtual, professionally-led group providing targeted support for you and others who share your role. https://t.co/mlJqpWp0qy #gyncsm #KnowOvarian @GraceCampbellRN |
| AliveAndKickn @Alive_And_Kickn AliveAndKickn also hosts a virtual patient community discussion series. Various topics related to Lynch syndrome are discussed each month, check out the schedule, topics and registration here, https://t.co/9IweDewDAb #gyncsm |
| CancerDotNet @CancerDotNet Our blog is updated 2x/week with thoughtful perspectives & information from #Patients, #PatientAdvocates, #Survivors, and medical experts, including our #GynecologicCancer oncologist editors https://t.co/DNX9ar19US Some of tonight's attendees have authored blogs for us! #gyncsm |
| Christina Lizaso @btrfly12 RT @Alive_And_Kickn: T2: There is an emotional connection you can make with others going through the same things you are that can happen mu… |
| Dee Sparacio @womenofteal RT @Alive_And_Kickn: In partnership with @ColonCancerCoal, we will be hosting the 2022 Living with Lynch Patient Workshop in Boston Sept 15… |
| Cancer Hope Network @CancerHopeNet For more than 40 years, we’ve been providing hope and #peersupport for cancer patients and the people who love them. Our free and confidential matches are available at any point in a #cancer journey – from #genetictesting, through dx, treatment, survivorship, bereavement #gyncsm |
| Dee Sparacio @womenofteal RT @SuzieSiegel: T2. There's no local support group for my type of cancer. But I participate on LMSDR's FB page and in its webinars. I'm ma… |
| Dee Sparacio @womenofteal RT @NOCC_National: Are you an #ovariancancer caregiver? NOCC's Teal Cares Network is a virtual, professionally-led group providing targeted… |
| Dee Sparacio @womenofteal RT @ucan2020: UCAN is making sure everyone with a uterus knows that uterine cancer exists, and our PAP is not a screening/testing method fo… |
| Dee Sparacio @womenofteal RT @Alive_And_Kickn: AliveAndKickn also hosts a virtual patient community discussion series. Various topics related to Lynch syndrome are… |
| Cancer Hope Network @CancerHopeNet Each of our matches (connection between volunteer mentor and client) are supervised by our Programs Team - healthcare/social work professionals – who provide additional resources and information for patients and caregivers. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm C's can start along as A's wrap up. Then E's and I's. Love learning about all the great things available. #gyncsm |
| Cancer Nation @CancerAdvocacy NCCS represents millions of Americans who share the survivorship experience of living with, through, and beyond a cancer diagnosis. We advocate for policy changes that ensure quality cancer care for all. Our work reflects the needs of survivors at the national level. #gyncsm |
| Dee Sparacio @womenofteal A Volunteer helped me and I have been supporting others for 10+ years. #gyncsm |
| Cancer Nation @CancerAdvocacy NCCS’s Cancer Policy & Advocacy Team is a program for survivors and caregivers to advocate for policies that address cancer survivors' needs. Learn more and complete the questionnaire to become a part of our nationwide network of advocates. #gyncsm https://t.co/0wD9hCU4Al |
| Cancer and Careers @CancerAndCareer Once again, CAC empowers & educates people with any kind of cancer to thrive in any kind of job, by providing expert advice, interactive tools & educational events. All of our programming is offered 100% free of charge to patients and survivors. #gyncsm #bethebossovercancer |
| Dee Sparacio @womenofteal RT @gyncsm: C's can start along as A's wrap up. Then E's and I's. Love learning about all the great things available. #gyncsm |
| Cancer and Careers @CancerAndCareer We offer 3 conferences a year. Registration is open for our next one on Fri, 6/24 (https://t.co/5fY5hKtPml). These full-day events offer opportunities to learn from experts, chat w/fellow patients/survivors & ask Qs. + free CEs for Nurses, Social Workers, & HR Pros. #gyncsm |
| Dee Sparacio @womenofteal RT @CancerAdvocacy: NCCS represents millions of Americans who share the survivorship experience of living with, through, and beyond a cance… |
| Cancer Nation @CancerAdvocacy NCCS's Survivorship Champions program is an opportunity for clinicians and researchers to exchange information about best practices, lessons learned, and effective models of cancer survivorship care. #gyncsm https://t.co/T12xnDCDQY |
| Ovarcome @ovarcome Learn about our #OvarCare financial, psycho-social and informational assistance program, now operational in partnership with ~250 hospitals nationwide! #gyncsm https://t.co/IXIbagsFee |
| Cancer and Careers @CancerAndCareer Other programs include: Monthly webinars (https://t.co/TXDODDwQ53), Resume review (https://t.co/B6FxEqAFnW) & websites in English (https://t.co/nlG7V53Asg) & Spanish (https://t.co/cqKlSfJfLn) where you can order materials, ask Qs to experts & more #gyncsm |
| Dee Sparacio @womenofteal RT @CancerAdvocacy: NCCS’s Cancer Policy & Advocacy Team is a program for survivors and caregivers to advocate for policies that address ca… |
| Cancer Nation @CancerAdvocacy NCCS's 2021 State of Survivorship Survey helps us understand patient and survivor attitudes, experiences, and needs. The results demonstrate that quality care, support, and financial resources lead to better patient outcomes. #gyncsm https://t.co/e1DzhflvtN |
| Dee Sparacio @womenofteal RT @CancerAndCareer: Once again, CAC empowers & educates people with any kind of cancer to thrive in any kind of job, by providing expert a… |
| Lindsey McAlarnen, MD, FACOG @LAMcAlarnenMD RT @ucan2020: UCAN is making sure everyone with a uterus knows that uterine cancer exists, and our PAP is not a screening/testing method fo… |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm "@IrinaBrooke1: T2 online friends became real life support. Not in person due to covid and I don’t want to schlep far." |
| Dee Sparacio @womenofteal RT @CancerAndCareer: We offer 3 conferences a year. Registration is open for our next one on Fri, 6/24 (https://t.co/5fY5hKtPml). These ful… |
| Cancer and Careers @CancerAndCareer If you or someone you know has questions or needs help, we have trained social workers on staff who can assist. You can reach out to us by email (cancerandcareers@cew.org) or by phone (646-929-8032). #gyncsm |
| IamCervivor @IamCervivor RT @CancerAndCareer: We offer 3 conferences a year. Registration is open for our next one on Fri, 6/24 (https://t.co/5fY5hKtPml). These ful… |
| Dee Sparacio @womenofteal RT @CancerAdvocacy: NCCS's Survivorship Champions program is an opportunity for clinicians and researchers to exchange information about be… |
| Cancer Hope Network @CancerHopeNet And an amazing, resource-filled conference each year! #gyncsm |
| Dee Sparacio @womenofteal RT @ovarcome: Learn about our #OvarCare financial, psycho-social and informational assistance program, now operational in partnership with… |
| CancerDotNet @CancerDotNet A #Survivorship Care Plan (SCP) is a way to keep a record of your cancer treatments & recommended follow-up care to support your future health. @ASCO offers a series of SCP forms, incld new additions on cervical, uterine, & ovarian cancers https://t.co/gWpjHiJz5o #gyncsm |
| Dee Sparacio @womenofteal RT @CancerAndCareer: If you or someone you know has questions or needs help, we have trained social workers on staff who can assist. You ca… |
| ECANA @ECANAwomen #gyncsm ECANA is a black EC survivor-led infrastructure for personal empowerment to better health - through knowledge, community building, and action - for African-American women at risk and those already affected by endometrial cancer. |
| CancerDotNet @CancerDotNet Listen as @DrMarkham discusses #Survivorship care plans for #GynecologicalCancer survivors #gyncsm https://t.co/78lsHHOvsO |
| Cancer Hope Network @CancerHopeNet @womenofteal Forever grateful! #gyncsm |
| Dee Sparacio @womenofteal RT @CancerAdvocacy: NCCS's 2021 State of Survivorship Survey helps us understand patient and survivor attitudes, experiences, and needs. Th… |
| Amanda Crowell Itliong @MIShouldTalk Hi friends! Amanda here listening to learn! I’m living with ovarian cancer and in clinical trial. Also always using my time to try to help others with cancer. #gyncsm |
| CancerDotNet @CancerDotNet RT @ECANAwomen: #gyncsm ECANA is a black EC survivor-led infrastructure for personal empowerment to better health - through knowledge, comm… |
| ECANA @ECANAwomen #gyncsm ECANA promotes transparent, patient-centered research to reduce racial disparities in endometrial cancer through project development and public promotion of research efforts to that effect. The S.I.S.T.E.R Study is one example of those projects. https://t.co/azfEvCMxIw |
| Dee Sparacio @womenofteal RT @ECANAwomen: #gyncsm ECANA is a black EC survivor-led infrastructure for personal empowerment to better health - through knowledge, comm… |
| Dee Sparacio @womenofteal RT @CancerDotNet: Listen as @DrMarkham discusses #Survivorship care plans for #GynecologicalCancer survivors #gyncsm https://t.co/78lsHHOv… |
| CancerDotNet @CancerDotNet RT @ovarcome: Learn about our #OvarCare financial, psycho-social and informational assistance program, now operational in partnership with… |
| Ovarcome @ovarcome Join us for our #TealTruths ONLINE Group Counseling sessions each month, where we come together to share, to mingle, to OVARCOME! 💙 https://t.co/2D4Y62g6iB #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @ECANAwomen: #gyncsm ECANA is a black EC survivor-led infrastructure for personal empowerment to better health - through knowledge, comm… |
| Dee Sparacio @womenofteal For those joining in now, today we are holding a Digital Health Fair and organizations offering support for women impacted by gyn cancers and their caregivers are joining us. #gyncsm |
| CancerDotNet @CancerDotNet RT @Alive_And_Kickn: AliveAndKickn also hosts a virtual patient community discussion series. Various topics related to Lynch syndrome are… |
| CancerDotNet @CancerDotNet RT @NOCC_National: Are you an #ovariancancer caregiver? NOCC's Teal Cares Network is a virtual, professionally-led group providing targeted… |
| Dee Sparacio @womenofteal Great and important project. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm I's and N's are up next with O's not far behind. #gyncsm |
| Lindsey McAlarnen, MD, FACOG @LAMcAlarnenMD @womenofteal #gyncsm looking forward to the collated results of the digits health fair. Will be sharing with our clinic! |
| Dee Sparacio @womenofteal @MIShouldTalk Hi Amanda , So glad to see you again. #gyncsm |
 | Shelley LM @ShelleyMLM We are the Mucinous Ovarian Cancer Coalition. Launched by my late sister in September of 2020. In addition to financial supportnd opinions, and resources, we fund research grants. RFPs for Rhonda’s Award begins on June 2nd for grants up to $50k. https://t.co/tFgEAIE4kv #gyncsm |
| @elixirfund The Elixir Fund provides support to cancer patients and caregivers. #gyncsm | |
| @elixirfund The Elixir Fund Registry is a free, easy to use tool that allows patients and caregivers to create a list of their needs with links to e-gift cards for things like grocery gift cards, meal delivery, gas gift cards, massage and more. #gyncsm | |
| @elixirfund The Registry can be shared with family and friends or made public for the larger community to help. https://t.co/XMHNAMQQy6 #gyncsm | |
| @elixirfund We also offer a weekly guided meditation online. https://t.co/JiSPczjnAc #gyncsm | |
| @elixirfund Elixir Fund also offers navigation-type services & helps patients & caregivers identify support resources in their local areas. #gyncsm | |
| Christina Lizaso @btrfly12 #gyncsm More organizations have licensed social workers available by phone than I realized. Love this resource. |
| Cancer Hope Network @CancerHopeNet Find us online – https://t.co/66FA1VcnQU - or by calling 877-HOPENET (877.467.3638). Talk with a member of our Programs Team to find a survivor or caregiver mentor who’s a perfect fit. #gyncsm https://t.co/kdiXD5GCfl |
| Dee Sparacio @womenofteal RT @ShelleyMLM: We are the Mucinous Ovarian Cancer Coalition. Launched by my late sister in September of 2020. In addition to financial sup… |
| Christina Lizaso @btrfly12 RT @elixirfund: We also offer a weekly guided meditation online. https://t.co/JiSPczjnAc #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @ECANAwomen: #gyncsm ECANA is a black EC survivor-led infrastructure for personal empowerment to better health - through knowledge, comm… |
| IamCervivor @IamCervivor #Cervivor is a global community of patient advocates who inspire and empower those affected by #cervicalcancer by educating and motivating them to use their voices for creating awareness to #endSTIgma, influence decision and change, and #endcervicalcancer. #GYNCSM |
| @elixirfund You can find out more on website - https://t.co/oSyK6GqvUw #gyncsm | |
| Cancer and Careers @CancerAndCareer @btrfly12 we love our social workers! #gyncsm |
| @ RT @IamCervivor: #Cervivor is a global community of patient advocates who inspire and empower those affected by #cervicalcancer by educatin… | |
| Ovarcome @ovarcome Stay updated with the latest & greatest advances in #OvarianCancer and learn from the Global Experts! Let's #ConnectOvarCoffee every 2 weeks! WATCH all videos aired to date ON DEMAND here: https://t.co/GP7j5PhEaM #gyncsm https://t.co/e0pnXyy0Kv |
| Cancer Hope Network @CancerHopeNet RT @ECANAwomen: #gyncsm ECANA is a black EC survivor-led infrastructure for personal empowerment to better health - through knowledge, comm… |
| Christina Lizaso @btrfly12 RT @womenofteal: For those joining in now, today we are holding a Digital Health Fair and organizations offering support for women impacted… |
| Dee Sparacio @womenofteal RT @elixirfund: The Elixir Fund provides support to cancer patients and caregivers. #gyncsm |
| Dee Sparacio @womenofteal RT @elixirfund: The Elixir Fund Registry is a free, easy to use tool that allows patients and caregivers to create a list of their needs wi… |
| IamCervivor @IamCervivor You can find out more by going to our website at https://t.co/acUPy4y0M6 or visit https://t.co/YVMhPRcTzw to connect with us across our social media platforms, podcast, award-winning YouTube channel, and to sign-up for our newsletter. #CervicalCancer #GYNCSM |
| Christina Lizaso @btrfly12 RT @ovarcome: Stay updated with the latest & greatest advances in #OvarianCancer and learn from the Global Experts! Let's #ConnectOvarCoffe… |
| Cancer Hope Network @CancerHopeNet RT @IamCervivor: #Cervivor is a global community of patient advocates who inspire and empower those affected by #cervicalcancer by educatin… |
| Suzie Siegel @SuzieSiegel https://t.co/p0wVqj4ZkB offers individual support, a private FB group, webinars. President Sharon Anderson is a social worker. @2LMSdr #gyncsm |
| National Ovarian Cancer Coalition @NOCC_National We are the NOCC. Our #mission is to save lives through the prevention and cure of #ovariancancer and to improve quality of life for survivors and their caregivers. https://t.co/42H5oqkwmw #KnowOvarian #gyncsm |
| Dee Sparacio @womenofteal RT @CancerHopeNet: Find us online – https://t.co/66FA1VcnQU - or by calling 877-HOPENET (877.467.3638). Talk with a member of our Programs… |
| Christina Lizaso @btrfly12 RT @SuzieSiegel: https://t.co/p0wVqj4ZkB offers individual support, a private FB group, webinars. President Sharon Anderson is a social wor… |
| Dee Sparacio @womenofteal RT @IamCervivor: #Cervivor is a global community of patient advocates who inspire and empower those affected by #cervicalcancer by educatin… |
| National Ovarian Cancer Coalition @NOCC_National There is no screening test for #ovariancancer; a Pap test cannot detect the disease. So, women need to know their bodies, be aware of the signs and take early action. Learn more at https://t.co/42H5oqkwmw #KnowOvarian #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: You can find out more by going to our website at https://t.co/acUPy4y0M6 or visit https://t.co/YVMhPRcTzw to connect with… |
| IamCervivor @IamCervivor #Cervivor has a premiere event called #CervivorSchool for patient advocacy training. We also have a private Facebook group and a monthly support group for #cervicalcancer patients/survivors. And we have a fitness community for all cancer survivors: https://t.co/YVMhPRcTzw #GYNCSM |
| National Ovarian Cancer Coalition @NOCC_National Our #peersupportprograms offer ways to connect with other survivors and caregivers who can provide unique perspectives on your #ovariancancer journey: https://t.co/HfZagjKpLP. #KnowOvarian #gyncsm |
| Dee Sparacio @womenofteal RT @SuzieSiegel: https://t.co/p0wVqj4ZkB offers individual support, a private FB group, webinars. President Sharon Anderson is a social wor… |
| IamCervivor @IamCervivor Another program we offer is our Comfort Care & Compassion Program for newly diagnosed or for those facing a metastatic recurrence of #CervicalCancer. The CCC Program was designed by survivors to close the support gap: https://t.co/hnWPbWTpwb. #GYNCSM |
| Dee Sparacio @womenofteal RT @IamCervivor: #Cervivor has a premiere event called #CervivorSchool for patient advocacy training. We also have a private Facebook group… |
| @ RT @IamCervivor: #Cervivor has a premiere event called #CervivorSchool for patient advocacy training. We also have a private Facebook group… | |
| Dee Sparacio @womenofteal RT @NOCC_National: Our #peersupportprograms offer ways to connect with other survivors and caregivers who can provide unique perspectives o… |
| National Ovarian Cancer Coalition @NOCC_National Our #onlineprograms offer education on #ovariancancer and quality of life issues. From #virtual education on https://t.co/buIr9qnjzG to our monthly #FacebookLive series Ask the Experts, we deliver timely and relevant education. #KnowOvarian #gyncsm |
| SHARE Cancer Support @SHARECancerSupt At SHARE we provide dedicated, experienced support for women facing breast, ovarian, uterine, cervical or metastatic breast cancer. Our free services connect you with educational programs, support groups, clinical trial assistance, survivor-patient navigation and more! #gyncsm |
| SHARE Cancer Support @SHARECancerSupt Are you newly diagnosed with cervical cancer, in treatment, a long-term survivor, or concerned about your cervical cancer risk? We have support and information for you. Our new cervical cancer support line and educational resources are free of charge. Connect with us now! #gyncsm |
| National Ovarian Cancer Coalition @NOCC_National Our #directsupport services aim to reduce barriers associated with #ovariancancer care, such as #financialassistance, meal delivery, and mental health services. All of these are available at no cost: https://t.co/PyWpb9JumG #KnowOvarian. #gyncsm |
| Dee Sparacio @womenofteal RT @SHAREing: At SHARE we provide dedicated, experienced support for women facing breast, ovarian, uterine, cervical or metastatic breast c… |
| Ovarcome @ovarcome #OC360LIVE! Ask The Expert DIRECTLY Online! Learn about this program here: https://t.co/pXdsdBP8D2 #gyncsm https://t.co/wiZQNbadRh |
| IamCervivor @IamCervivor #CervicalCancer can be prevented with routine cancer screenings and vaccination. Please have a conversation with your medical care team about your medical history and the best route for screening for you. #GYNCSM |
| National Ovarian Cancer Coalition @NOCC_National Ready to learn more and join our TEAL community? Sign up for our newsletter today! We are here to connect - got questions? Ask away! https://t.co/HzdLTEY8d9 #KnowOvarian #gyncsm |
 | Luz Andrea @lcuaboy14 RT @ECANAwomen: #gyncsm ECANA promotes transparent, patient-centered research to reduce racial disparities in endometrial cancer through pr… |
| Dee Sparacio @womenofteal RT @ovarcome: #OC360LIVE! Ask The Expert DIRECTLY Online! Learn about this program here: https://t.co/pXdsdBP8D2 #gyncsm https://t.co/wiZQ… |
| IamCervivor @IamCervivor Your story has the power to create change. Your story matters. Share your story with us and lets #EndCervicalCancer. https://t.co/8Loll7kaBd #Cervivor #CervicalCancer #GYNCSM |
| GYN Cancer | #GYNCSM @gyncsm Note - We've asked the participating organizations to share key awareness messages along with their information. Appreciate all who help amplify those in the coming days, weeks, etc. :) #gyncsm |
| Luz Andrea @lcuaboy14 RT @ECANAwomen: #gyncsm ECANA is a black EC survivor-led infrastructure for personal empowerment to better health - through knowledge, comm… |
| Amanda Crowell Itliong @MIShouldTalk One thing I’d like to mention to all here is that I’m in a prominent clinical trial and they pulled a bait and switch on me and tried to not cover reasonable travel costs. I’ve been hearing of this more and more. #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk These orgs supposedly listen to many of your orgs and give you $. Are you asking about supporting trial patients and financial toxicity of clinical trials? Can you start? #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk I’m finally getting my basic needs met (for all of) after me fighting for 5 months. I think many of us fighting this stuff die before getting what we need. This is an issue we NEED all of you on! #gyncsm |
 | Ovarian Cancer Research Alliance @ocrahope Ovarian Cancer Research Alliance (OCRA) is the largest non-government funder of ovarian cancer research and has invested $110 million in research since its founding. #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope OCRA fights ovarian cancer from all fronts, including in the lab and on Capitol Hill, and through innovative programs to support patients and their families. Visit us at https://t.co/bfGHBQ1yIw & follow us on social: @ocrahope #gyncsm |
| Shelley LM @ShelleyMLM RT @gyncsm: Thanks all! Now it is time for our Digital Health Fair! #gyncsm |
| Sarah Cassidy @CassidyFish2 @CancerAndCareer @btrfly12 Social workers run the world!! #gyncsm https://t.co/tauHwX9o0a |
| Ovarian Cancer Research Alliance @ocrahope OCRA offers support for all gynecologic cancer patients & their loved ones! Visit https://t.co/JQ0UUK63QM to get more info about our patient support line, Woman to Woman peer mentor program, Staying Connected online support groups & @teaminspire global online community. #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk RT @gyncsm: Please share: The next #gyncsm monthly chat re: gynecologic cancers is today, Wed May 11th, at 8pmET. We're hosting a Digital… |
| Dee Sparacio @womenofteal RT @gyncsm: Note - We've asked the participating organizations to share key awareness messages along with their information. Appreciate all… |
| Ovarian Cancer Research Alliance @ocrahope Join us in making a difference! Our Survivors Teaching Students volunteers educate rising healthcare professionals. Our team of Advocate Leaders engage with elected officials about critical issues. Learn about ways to get involved: https://t.co/mDYfDojMtD. #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk RT @womenofteal: For those joining in now, today we are holding a Digital Health Fair and organizations offering support for women impacted… |
| Uterine Cancer Awareness Network @ucan2020 UCAN is dedicated to helping patients, survivors, and caregivers find support and patient services specific to endometrial cancer. If we don’t offer what’s needed, we will search our network to help find it and take some of the burdens off you! #gyncsm |
| @WilliamdeVry1 RT @ocrahope: OCRA fights ovarian cancer from all fronts, including in the lab and on Capitol Hill, and through innovative programs to supp… | |
| SGO @SGO_org RT @ocrahope: OCRA offers support for all gynecologic cancer patients & their loved ones! Visit https://t.co/JQ0UUK63QM to get more info ab… |
| Ovarian Cancer Research Alliance @ocrahope The importance of being treated by a gynecologic oncologist for ovarian cancer can’t be stressed enough. Outcomes for patients vastly improve when they are treated by gynecologic oncologists, according to numerous studies. Get more info at https://t.co/AYIdEWUYMK. #gyncsm |
| IamCervivor @IamCervivor RT @CancerHopeNet: Find us online – https://t.co/66FA1VcnQU - or by calling 877-HOPENET (877.467.3638). Talk with a member of our Programs… |
| Ovarian Cancer Research Alliance @ocrahope Inherited gene mutations can increase the risk of developing ovarian cancer. That’s why it’s important to learn your family history and discuss it with your doctor. Learn more about risk factors at https://t.co/9OMLiE8rPY. #gyncsm |
| SGO @SGO_org RT @gyncsm: Note - We've asked the participating organizations to share key awareness messages along with their information. Appreciate all… |
| Ovarcome @ovarcome At the core and CENTER of what we do, are our OVARCOMERS worldwide 💙. That is all 🙏🏼. #gyncsm https://t.co/43GJ85hYWL |
| National Ovarian Cancer Coalition @NOCC_National @MIShouldTalk - The NOCC Financial Assistance Program is here to help reduce the barriers associated with #ovariancancer treatment and #clinicaltrial participation by providing financial assistance for non-medical expenses.https://t.co/n2ZaiTpYnB #gyncsm |
| SGO @SGO_org RT @ocrahope: The importance of being treated by a gynecologic oncologist for ovarian cancer can’t be stressed enough. Outcomes for patient… |
| Dee Sparacio @womenofteal @MIShouldTalk I am sorry this occurred. |
| Dee Sparacio @womenofteal RT @ocrahope: Ovarian Cancer Research Alliance (OCRA) is the largest non-government funder of ovarian cancer research and has invested $110… |
| Dee Sparacio @womenofteal RT @ocrahope: OCRA fights ovarian cancer from all fronts, including in the lab and on Capitol Hill, and through innovative programs to supp… |
| Dee Sparacio @womenofteal RT @ocrahope: OCRA offers support for all gynecologic cancer patients & their loved ones! Visit https://t.co/JQ0UUK63QM to get more info ab… |
 | Dre Day @TheAndiC RT @ocrahope: OCRA offers support for all gynecologic cancer patients & their loved ones! Visit https://t.co/JQ0UUK63QM to get more info ab… |
| @ 1/2 The World Ovarian Cancer Coalition was founded in 2016 and is a global network of close to 200 patient advocacy orgs with a vision of a world where every woman with ovarian cancer has the best chance of survival, and the best quality of life – wherever she may live. #gyncsm | |
| Suzie Siegel @SuzieSiegel .@SarcomaAlliance has FB pages for support & news, an annual conference & tons of info. The problem for women with gyn #sarcoma is that gyn nonprofits may have little or nothing on sarcoma. It can be confusing to patients who only understand that they have cancer. #gyncsm |
 | Mimi @Mimiinmendon RT @MIShouldTalk: These orgs supposedly listen to many of your orgs and give you $. Are you asking about supporting trial patients and fina… |
 | Erin Stevens @erinstevensmd RT @ucan2020: UCAN is making sure everyone with a uterus knows that uterine cancer exists, and our PAP is not a screening/testing method fo… |
| Cancer Hope Network @CancerHopeNet Cancer impacts more than the patient. Our caregiver support means no one needs to face cancer alone. #gyncsm https://t.co/66FA1VcVGs |
 | Becca C. @AchtungBecca RT @NOCC_National: There is no screening test for #ovariancancer; a Pap test cannot detect the disease. So, women need to know their bodies… |
| GYN Cancer | #GYNCSM @gyncsm I think we are up to P, R, S rounding out with U. Advocates can also share key messages and favorite resources. #gyncsm |
| Ovarcome @ovarcome A special shout out to ALL organizations working relentlessly to uplift and strengthen our teal community worldwide 🌎. Thank You! Together #WeOvarcome! 💙 #gyncsm |
| @AliveAndKicknDD RT @btrfly12: #gyncsm More organizations have licensed social workers available by phone than I realized. Love this resource. | |
| Dee Sparacio @womenofteal A few oncs I have spoken to remember when they heard OC survivors speak. #gyncsm |
| Dee Sparacio @womenofteal RT @ucan2020: UCAN is dedicated to helping patients, survivors, and caregivers find support and patient services specific to endometrial ca… |
| SGO @SGO_org The Foundation for Women’s Cancer @GYNCancer is the official foundation of the Society of Gynecologic Oncology. FWC’s #MoveTheMessage campaign seeks to increase awareness and drive early diagnosis of the 5 gyn cancers. https://t.co/p9FdPBueQx #gyncsm |
| Dee Sparacio @womenofteal RT @ocrahope: The importance of being treated by a gynecologic oncologist for ovarian cancer can’t be stressed enough. Outcomes for patient… |
| Stupid Cancer @StupidCancer We at Stupid Cancer host a range of interactive and educational programs on topics important to the AYA cancer community. We host monthly discussions series led by experts on topics important to the young adult cancer community where you get to unpack your experiences. #gyncsm |
| ECANA @ECANAwomen #gyncsm In 2020, the JAMA published that Black women with EC have a 90% higher mortality risk compared with white women. ECANA advocates for clinical and research evidence-based guidelines that optimize outcomes for Black women with EC and improve their overall quality of LIFE. |
| Patient Empowerment Network @power4patients To help improve #healthliteracy, we created digital sherpa™ and Digitally Empowered™ because we believe all patients, regardless of age and technical ability, should have access to health information about their care. Learn more: https://t.co/DYdH7kuaXZ #gyncsm |
| Stupid Cancer @StupidCancer We also host casual, and social events known as digital meetups which give a chance for AYA peers to connect and party with others in the community. And we also host quarterly open mic nights for the community to share their stories with their peers. #gyncsm |
 | Colon Cancer Coalition @ColonCancerCoal RT @Alive_And_Kickn: In partnership with @ColonCancerCoal, we will be hosting the 2022 Living with Lynch Patient Workshop in Boston Sept 15… |
| @AliveAndKicknDD RT @CancerDotNet: Listen as @DrMarkham discusses #Survivorship care plans for #GynecologicalCancer survivors #gyncsm https://t.co/78lsHHOv… | |
| SGO @SGO_org @GYNCancer recently released 7 updated brochures about the 5 gyn cancers, CA125 and clinical trials https://t.co/p9FdPBueQx FWC is currently translating some materials into Spanish and Mandarin Chinese. #gyncsm |
| Dee Sparacio @womenofteal @NOCC_National @MIShouldTalk This is so good to know. #gyncsm |
| ECANA @ECANAwomen #gyncsm "Survivors Sanctuary" is a mindful movement program that runs every two weeks and features chair yoga and conversation for black women at any stage of their cancer journey. Register @ecanawomen.org and sign up for our quarterly newsletter to stay informed of happenings. |
| Dee Sparacio @womenofteal RT @SuzieSiegel: .@SarcomaAlliance has FB pages for support & news, an annual conference & tons of info. The problem for women with gyn #sa… |
| Stupid Cancer @StupidCancer Registration is still open for #CancerCon Live 2022 in Minneapolis this June! This conference brings together hundreds of patients, survivors, caregivers, advocates and health professionals to learn, share and build community. For more info visit https://t.co/imbFdtZRDt. #gyncsm |
| SGO @SGO_org Brand new fact sheets on rare tumors in #gyncancer are also available on the @GYNCancer website. https://t.co/xQsxxQSJ6t #gyncsm |
 | PF Anderson @pfanderson@disabled.social @pfanderson RT @ShelleyMLM: We are the Mucinous Ovarian Cancer Coalition. Launched by my late sister in September of 2020. In addition to financial sup… |
| Dee Sparacio @womenofteal RT @CancerHopeNet: Cancer impacts more than the patient. Our caregiver support means no one needs to face cancer alone. #gyncsm https://t.c… |
| Stupid Cancer @StupidCancer To stay up-to-date with the Stupid Cancer community and events, follow us on social media @stupidcancer. Also visit https://t.co/M4pF8JcERN to check out our events calendar. #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 We currently provide monthly virtual support groups, free chemo caps, UCAN treatment bags, Hydration products, and free awareness seminars hosted by our founder who's a survivor diagnosed at 27.#gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: I think we are up to P, R, S rounding out with U. Advocates can also share key messages and favorite resources. #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @power4patients: T1: I think the kind/type of information and support needed is not one size fits all and can also change along the way,… |
| GYN Cancer | #GYNCSM @gyncsm RT @SGO_org: Brand new fact sheets on rare tumors in #gyncancer are also available on the @GYNCancer website. https://t.co/xQsxxQSJ6t #gync… |
| Dee Sparacio @womenofteal RT @SGO_org: The Foundation for Women’s Cancer @GYNCancer is the official foundation of the Society of Gynecologic Oncology. FWC’s #MoveThe… |
| Dee Sparacio @womenofteal RT @StupidCancer: We at Stupid Cancer host a range of interactive and educational programs on topics important to the AYA cancer community.… |
| Amanda Crowell Itliong @MIShouldTalk @NOCC_National Thanks so much BUT, these are basic needs that should automatically be met through trial participation. Trials needs diversity and financial toxicity is standing on the way. This needs system change, not a band-aid. Would be an awesome question to ask when you meet orgs! |
| @AliveAndKicknDD RT @Alive_And_Kickn: In partnership with @ColonCancerCoal, we will be hosting the 2022 Living with Lynch Patient Workshop in Boston Sept 15… | |
| @ 1/2 If the #ovariancancer community could only do one thing, especially just after #WOCD2022, it would be to share with everyone they know the 5 Facts of Ovarian Cancer.#gyncsm https://t.co/1tT1UvMDFG | |
| Dee Sparacio @womenofteal For those joining in now, we are holding a Digital Health Fair and organizations offering support for women impacted by gyn cancers and their caregivers are joining us. #gyncsm |
| IamCervivor @IamCervivor RT @SGO_org: The Foundation for Women’s Cancer @GYNCancer is the official foundation of the Society of Gynecologic Oncology. FWC’s #MoveThe… |
| PF Anderson @pfanderson@disabled.social @pfanderson @power4patients This is why I go to patient groups when HCPs run out of ideas. Greater diversity of experience and information #GyncSM |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm :) |
| Dee Sparacio @womenofteal RT @ECANAwomen: #gyncsm In 2020, the JAMA published that Black women with EC have a 90% higher mortality risk compared with white women. EC… |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @DrBeckerSchutte: T1: One resource I hear many folks talk about is the value of a “designated listener” at doctor’s appointments—someone… |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: #gyncsm :) |
| ECANA @ECANAwomen RT @gyncsm: #gyncsm :) |
| Suzie Siegel @SuzieSiegel Btw, #leiomyosarcoma is not the only #sarcoma that can be in the gyn tract. Here are other gyn sarcomas: https://t.co/0PG32vbkyU #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: For those joining in now, we are holding a Digital Health Fair and organizations offering support for women impacted by gy… |
| SGO @SGO_org RT @gyncsm: #gyncsm :) |
| Uterine Cancer Awareness Network @ucan2020 Free awareness seminars for any group or organization! If we talk about our breasts we must talk about our uterus! #gyncsm https://t.co/hfCEF4wY2W |
| GYN Cancer | #GYNCSM @gyncsm RT @SuzieSiegel: Btw, #leiomyosarcoma is not the only #sarcoma that can be in the gyn tract. Here are other gyn sarcomas: https://t.co/0PG3… |
| Dee Sparacio @womenofteal @power4patients This is a great idea! Thanks for sharing it with us. #gyncsm |
| Dee Sparacio @womenofteal RT @StupidCancer: We also host casual, and social events known as digital meetups which give a chance for AYA peers to connect and party w… |
| IamCervivor @IamCervivor RT @StupidCancer: Registration is still open for #CancerCon Live 2022 in Minneapolis this June! This conference brings together hundreds of… |
| @ RT @SuzieSiegel: Btw, #leiomyosarcoma is not the only #sarcoma that can be in the gyn tract. Here are other gyn sarcomas: https://t.co/0PG3… | |
| SGO @SGO_org RT @ovariancancerco: 1/2 If the #ovariancancer community could only do one thing, especially just after #WOCD2022, it would be to share wit… |
| Patient Empowerment Network @power4patients Our Clinical Trials 101 program aims to debunks misconceptions and fears about trial participation and provides patients with knowledge and confidence to feel well-informed when discussing treatment options with their healthcare team. Learn more: https://t.co/ExonUQ13r3 #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @ovarcome: A special shout out to ALL organizations working relentlessly to uplift and strengthen our teal community worldwide 🌎. Thank… |
| @ RT @StupidCancer: Registration is still open for #CancerCon Live 2022 in Minneapolis this June! This conference brings together hundreds of… | |
| SGO @SGO_org RT @ECANAwomen: #gyncsm "Survivors Sanctuary" is a mindful movement program that runs every two weeks and features chair yoga and conversat… |
| Dee Sparacio @womenofteal Wonderful that the info is translated into Spanish and Chinese. #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 We want to see more black and brown women included in clinical trials however they must know about them to participate we would love to help spread the word! #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm They couldn't attend today, but : @ClearityFnd has two unique programs for #OvarianCancer patients: Treatment Decision Support https://t.co/cAbXaSUH46 and @stepsthrough https://t.co/vnCOg4nBVM |
| ECANA @ECANAwomen #gyncsm CEP's-EC (Community Empowerment Partners-Endometrial Cancer) is a flagship program for ECANA that was adapted from Cierra Sisters' original community empowerment program that educates black communities about specific disease states. We launched this program in 2019. |
| Dee Sparacio @womenofteal RT @ECANAwomen: #gyncsm "Survivors Sanctuary" is a mindful movement program that runs every two weeks and features chair yoga and conversat… |
| Christina Lizaso @btrfly12 Patient Resource | On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a starting point: https://t.co/LRawOmxMsN |
| Ann Becker-Schutte @DrBeckerSchutte RT @btrfly12: Patient Resource | On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a start… |
| Dee Sparacio @womenofteal RT @StupidCancer: Registration is still open for #CancerCon Live 2022 in Minneapolis this June! This conference brings together hundreds of… |
| Dee Sparacio @womenofteal RT @SGO_org: Brand new fact sheets on rare tumors in #gyncancer are also available on the @GYNCancer website. https://t.co/xQsxxQSJ6t #gync… |
| IamCervivor @IamCervivor RT @power4patients: Our Clinical Trials 101 program aims to debunks misconceptions and fears about trial participation and provides patient… |
| @ RT @btrfly12: #gyncsm They couldn't attend today, but : @ClearityFnd has two unique programs for #OvarianCancer patients: Treatment Decisio… | |
| Dee Sparacio @womenofteal RT @StupidCancer: To stay up-to-date with the Stupid Cancer community and events, follow us on social media @stupidcancer. Also visit https… |
| Dee Sparacio @womenofteal RT @ucan2020: We currently provide monthly virtual support groups, free chemo caps, UCAN treatment bags, Hydration products, and free aware… |
| Tobey @BRCAinfo RT @btrfly12: Patient Resource | On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a start… |
| Christina Lizaso @btrfly12 I really like this @ocrahope page about Ovarian Cysts. Very informative: https://t.co/rbDeGCZsdd especially since I recently dealt with a couple #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope @womenofteal Thank you for sharing, Dee! We're deeply grateful to our STS volunteers for sharing their stories to make a difference. Anyone who is interested can find more info about the program at https://t.co/pPf7uWZYrv |
| Dee Sparacio @womenofteal @ucan2020 free chemo caps ...I didn't know that. #gyncsm |
| SGO @SGO_org RT @SuzieSiegel: Btw, #leiomyosarcoma is not the only #sarcoma that can be in the gyn tract. Here are other gyn sarcomas: https://t.co/0PG3… |
| Cancer Hope Network @CancerHopeNet RT @SGO_org: Brand new fact sheets on rare tumors in #gyncancer are also available on the @GYNCancer website. https://t.co/xQsxxQSJ6t #gync… |
| Dee Sparacio @womenofteal RT @ovariancancerco: 1/2 If the #ovariancancer community could only do one thing, especially just after #WOCD2022, it would be to share wit… |
| @AliveAndKicknDD RT @CancerDotNet: A #Survivorship Care Plan (SCP) is a way to keep a record of your cancer treatments & recommended follow-up care to suppo… | |
| Amanda Crowell Itliong @MIShouldTalk @NOCC_National Could you help us strategically? This is a problem. The only reason we got things fixed in my trial is because I lived long enough to keep on it. We fundraise for you to be our voices even after we die. I’ll share my story with y’all when I write it up. |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm :) https://t.co/k2xqLGtb3b |
| @AliveAndKicknDD RT @Alive_And_Kickn: T2: There is an emotional connection you can make with others going through the same things you are that can happen mu… | |
| Mutant Strong @IrinaBrooke1 RT @ucan2020: We want to see more black and brown women included in clinical trials however they must know about them to participate we wou… |
| Dee Sparacio @womenofteal RT @SuzieSiegel: Btw, #leiomyosarcoma is not the only #sarcoma that can be in the gyn tract. Here are other gyn sarcomas: https://t.co/0PG3… |
| SGO @SGO_org RT @btrfly12: Patient Resource | On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a start… |
| Dee Sparacio @womenofteal RT @ucan2020: Free awareness seminars for any group or organization! If we talk about our breasts we must talk about our uterus! #gyncsm ht… |
| @AliveAndKicknDD RT @ECANAwomen: #gyncsm ECANA is a black EC survivor-led infrastructure for personal empowerment to better health - through knowledge, comm… | |
| SGO @SGO_org RT @ucan2020: We want to see more black and brown women included in clinical trials however they must know about them to participate we wou… |
| PF Anderson @pfanderson@disabled.social @pfanderson @RobinSmrtPtient Thank you for your help there this week! #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 Our Peach Sister Program is a program we offer that will match you with a sister that will grab your hand and walk this walk with you! #gyncsm https://t.co/UQNK8tmDdI |
| Dee Sparacio @womenofteal So important to help patients be informed about clinical trials. #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @btrfly12: I really like this @ocrahope page about Ovarian Cysts. Very informative: https://t.co/rbDeGCZsdd especially since I recently… |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @btrfly12: Patient Resource | On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a start… |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm They couldn't attend today, but : @ClearityFnd has two unique programs for #OvarianCancer patients: Treatment Decisio… |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @ucan2020: We want to see more black and brown women included in clinical trials however they must know about them to participate we wou… |
| Uterine Cancer Awareness Network @ucan2020 You can reach UCAN at uterinecancerawarenessnetwork@outlook.com or on our website at https://t.co/f0PozYTSWL we are also on FB! Thanks for having us! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As the chat wraps up, we leave time to share with each other what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for “Today I Learned”. Also feel free to ask organizations' questions and share your own go-to resources. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: I really like this @ocrahope page about Ovarian Cysts. Very informative: https://t.co/rbDeGCZsdd especially since I recently… |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @power4patients: Our Clinical Trials 101 program aims to debunks misconceptions and fears about trial participation and provides patient… |
| Amanda Crowell Itliong @MIShouldTalk @NOCC_National @ocrahope #gyncsm |
| Dee Sparacio @womenofteal RT @ucan2020: Our Peach Sister Program is a program we offer that will match you with a sister that will grab your hand and walk this walk… |
| Cancer Hope Network @CancerHopeNet RT @btrfly12: Patient Resource | On the #gyncsm blog, we keep a resource page with general information for each gyn cancer. Kind of a start… |
| SHARE Cancer Support @SHARECancerSupt All of our Support Groups and Educational Programs are online and free! We offer programs and support for those with ovarian, uterine, and cervical cancer. #GYNCSM https://t.co/Lm3cH0y81J |
| Uterine Cancer Awareness Network @ucan2020 @womenofteal Yes, we provide free chemo caps to patients. |
 | Lee Jones @LeeJonesMBA RT @CancerAdvocacy: NCCS represents millions of Americans who share the survivorship experience of living with, through, and beyond a cance… |
 | Sigmund Frudihane @sigfruidhane RT @Alive_And_Kickn: T2: There is an emotional connection you can make with others going through the same things you are that can happen mu… |
| Dee Sparacio @womenofteal RT @gyncsm: As the chat wraps up, we leave time to share with each other what you learned or were reminded of during this chat. You can sta… |
| Dee Sparacio @womenofteal RT @SHAREing: All of our Support Groups and Educational Programs are online and free! We offer programs and support for those with ovarian,… |
| Christina Lizaso @btrfly12 I have a couple of favorite resources on CA125: Foundation for Women's Cancer Brochure (2021): Cancer CA-125 Levels-Your Guide https://t.co/CS9pJ4tMre The American Journal of Hematology and Oncology: CA-125 and Ovarian Cancer https://t.co/OnSLpeQnVJ #gyncsm #ovariancancer |
| Uterine Cancer Awareness Network @ucan2020 RT @SHAREing: All of our Support Groups and Educational Programs are online and free! We offer programs and support for those with ovarian,… |
| ECANA @ECANAwomen #gyncsm Thank you for this platform. We appreciate all you do. Please visit us at https://t.co/uX5N7vxFkK for more information about what we are doing to improve the overall survival of black women with endometrial cancer. |
| Lee Jones @LeeJonesMBA RT @CancerAdvocacy: NCCS's Survivorship Champions program is an opportunity for clinicians and researchers to exchange information about be… |
| GYN Cancer | #GYNCSM @gyncsm If you were new to #gyncsm and were "listening in", we hope you found this helpful and hope to see you on a chat in the coming months - 2nd Wed at 8pmET. It is not usually as fast-paced as tonight. We typically have an open discussion around 4-6 questions related to a main topic. |
| Lee Jones @LeeJonesMBA RT @CancerAdvocacy: NCCS’s Cancer Policy & Advocacy Team is a program for survivors and caregivers to advocate for policies that address ca… |
| GYN Cancer | #GYNCSM @gyncsm There will be a post-chat summary on our blog https://t.co/oAfi7Me49e and we'll put links and information shared on the chat. We'll also provide the link to the full transcript. #gyncsm |
| National Ovarian Cancer Coalition @NOCC_National Thank you for having us this evening and hosting this wonderful event! #gyncsm #KnowOvarian |
| Lee Jones @LeeJonesMBA RT @CancerAdvocacy: NCCS's 2021 State of Survivorship Survey helps us understand patient and survivor attitudes, experiences, and needs. Th… |
| Stupid Cancer @StupidCancer RT @gyncsm: There will be a post-chat summary on our blog https://t.co/oAfi7Me49e and we'll put links and information shared on the chat. W… |
| Dee Sparacio @womenofteal @ECANAwomen So glad you could join us and share the Sisters study and programs for black women with endometrial cancer. #gyncsm |
| Christina Lizaso @btrfly12 I also point people to @NCCN Guidelines for Patients - They have Cervical, Ovarian and Uterine available. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: There will be a post-chat summary on our blog https://t.co/oAfi7Me49e and we'll put links and information shared on the chat. W… |
| Lee Jones @LeeJonesMBA RT @power4patients: Our Clinical Trials 101 program aims to debunks misconceptions and fears about trial participation and provides patient… |
| ECANA @ECANAwomen #gyncsm TIL: That gynecological cancers are not something to be talked about quietly but should be talked about as boldly as non-GYN cancers!! Thank you all for Shouting! |
| @elixirfund TIL: about many incredible groups and many fantastic programs. Thank you all for sharing. #gyncsm | |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone for the wonderful conversation and a big thank you to our health fair participants. Save the date for our next #gyncsm chat on Wed, June 8th at 8pmET on “Gynecologic Cancer Research News". |
| Cancer Nation @CancerAdvocacy Thank you for having NCCS for this important and informative event! #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @ECANAwomen: #gyncsm TIL: That gynecological cancers are not something to be talked about quietly but should be talked about as boldly a… |
| SGO @SGO_org TIL the vast amount of available resources for #gyncancer patients. We're so glad to be a part of this community! https://t.co/1Q3CbsxeDn #gyncsm |
| Christina Lizaso @btrfly12 TIL: As our #gyncsm Twitter cover states, we are stronger when we work together. Loved learning about new resources and being reminded of others - all to support those impacted by cancer! Thanks for all you each do. |
| Dee Sparacio @womenofteal TIL that there are some many org doing amazing work by supporting research, one-on-one support, online support groups, translating information, free cold caps, rare disease support etc. #gyncsm |
| Patient Empowerment Network @power4patients Thank you #gyncsm for hosting this health fair! It was wonderful to learn about everyone's great work in supporting cancer patients and their loved ones |
| Suzie Siegel @SuzieSiegel TIL about [REDACTED USER]'s new pamphlets. And I'm always reminded that women with gyn #sarcoma are not zebras. We're unicorns. #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @btrfly12: TIL: As our #gyncsm Twitter cover states, we are stronger when we work together. Loved learning about new resources and being… |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN Thanks as always, @womenofteal @btrfly12 for a great chat! #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @SGO_org: TIL the vast amount of available resources for #gyncancer patients. We're so glad to be a part of this community! https://t.co… |
| GYN Cancer | #GYNCSM @gyncsm RT @ECANAwomen: #gyncsm TIL: That gynecological cancers are not something to be talked about quietly but should be talked about as boldly a… |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @gyncsm: Thanks to everyone for the wonderful conversation and a big thank you to our health fair participants. Save the date for our… |
| SGO @SGO_org RT @gyncsm: Thanks to everyone for the wonderful conversation and a big thank you to our health fair participants. Save the date for our… |
| Cancer Hope Network @CancerHopeNet Thanks for having us! We appreciate all you do to make connections, improve outcomes and make life better for the #gyncsm community. |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources. #gyncsm |
| SGO @SGO_org RT @ECANAwomen: #gyncsm TIL: That gynecological cancers are not something to be talked about quietly but should be talked about as boldly a… |
| SGO @SGO_org RT @gyncsm: There will be a post-chat summary on our blog https://t.co/oAfi7Me49e and we'll put links and information shared on the chat. W… |
| SGO @SGO_org RT @btrfly12: I have a couple of favorite resources on CA125: Foundation for Women's Cancer Brochure (2021): Cancer CA-125 Levels-Your Guid… |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte. |
| SGO @SGO_org RT @SHAREing: All of our Support Groups and Educational Programs are online and free! We offer programs and support for those with ovarian,… |
| Uterine Cancer Awareness Network @ucan2020 We are passionate about raising awareness. This cancer took away my ability to carry my own child and know what my DNA could have created. The saddest thing is I knew nothing about uterine cancer until I was diagnosed! We are trying to prevent that from happening to you! #gyncsm |
| Lindsey McAlarnen, MD, FACOG @LAMcAlarnenMD To all my @SGO_org @gynoncjnls @CancerRealTalk1 colleagues, 👇 is a 💎 of information for those with #gyncancer as well as their providers, caregivers, and support system! #Gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. Wishing wellness and safety for all. |
| Sarah Cassidy @CassidyFish2 @SuzieSiegel [REDACTED USER] Love this so very very much! #gyncsm https://t.co/WrraBjRcWn |
| Dee Sparacio @womenofteal RT @ucan2020: We are passionate about raising awareness. This cancer took away my ability to carry my own child and know what my DNA could… |
| Dee Sparacio @womenofteal Till the next time ...Stay well Teal Sisters, healthcare providers and caregivers. #gyncsm |
| @AliveAndKicknDD RT @ucan2020: We want to see more black and brown women included in clinical trials however they must know about them to participate we wou… | |
| Cancer Hope Network @CancerHopeNet RT @LAMcAlarnenMD: To all my @SGO_org @gynoncjnls @CancerRealTalk1 colleagues, 👇 is a 💎 of information for those with #gyncancer as well as… |
| Dee Sparacio @womenofteal RT @gyncsm: As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. Wishing wel… |
| AliveAndKickn @Alive_And_Kickn RT @womenofteal: Till the next time ...Stay well Teal Sisters, healthcare providers and caregivers. #gyncsm |
| Ovarian Cancer Research Alliance @ocrahope @gyncsm, thank you for including us in this informative chat! It was wonderful to hear from our community. We encourage anyone with questions to reach out to us via social or through our site: https://t.co/SAigKWkTyr We are here for you! #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @btrfly12: TIL: As our #gyncsm Twitter cover states, we are stronger when we work together. Loved learning about new resources and being… |
| Dee Sparacio @womenofteal RT @ocrahope: @gyncsm, thank you for including us in this informative chat! It was wonderful to hear from our community. We encourage anyon… |
| @seychelles311 RT @ucan2020: We currently provide monthly virtual support groups, free chemo caps, UCAN treatment bags, Hydration products, and free aware… | |
| Cancer Nation @CancerAdvocacy Subscribe to NCCS's email list to join survivors, caregivers, health care professionals, and advocates who care about survivorship issues! https://t.co/sVLP2sTrR1 #gyncsm |
| SGO @SGO_org Happy to be of service with @GYNCancer new patient education materials, including gyn #sarcoma. #gyncsm https://t.co/xQsxxQSJ6t |
| Dee Sparacio @womenofteal RT @CancerAdvocacy: Subscribe to NCCS's email list to join survivors, caregivers, health care professionals, and advocates who care about s… |
| Christina Lizaso @btrfly12 RT @CancerAdvocacy: Subscribe to NCCS's email list to join survivors, caregivers, health care professionals, and advocates who care about s… |
| SGO @SGO_org RT @ocrahope: @gyncsm, thank you for including us in this informative chat! It was wonderful to hear from our community. We encourage anyon… |
| SGO @SGO_org RT @womenofteal: Till the next time ...Stay well Teal Sisters, healthcare providers and caregivers. #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @btrfly12: #gyncsm They couldn't attend today, but : @ClearityFnd has two unique programs for #OvarianCancer patients: Treatment Decisio… |
| Amanda Crowell Itliong @MIShouldTalk RT @ucan2020: We are passionate about raising awareness. This cancer took away my ability to carry my own child and know what my DNA could… |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @ECANAwomen: #gyncsm ECANA is a black EC survivor-led infrastructure for personal empowerment to better health - through knowledge, comm… |
| Uterine Cancer Awareness Network @ucan2020 Gynecologists, Primary Care, and Family Planning Clinics contact us to get your free awareness posters in English and Spanish! 2022 let's make sure the patients see the symptoms!! Thanks for the invitation this has been great! #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @IamCervivor: A1: I had some of the BEST support when I went through both of my treatments for #cervicalcancer but I didn't feel like an… |
| Christina Lizaso @btrfly12 RT @ucan2020: Gynecologists, Primary Care, and Family Planning Clinics contact us to get your free awareness posters in English and Spanish… |
| Dee Sparacio @womenofteal RT @ucan2020: Gynecologists, Primary Care, and Family Planning Clinics contact us to get your free awareness posters in English and Spanish… |
| GYN Cancer | #GYNCSM @gyncsm Thanks again to all who attended and shared during our #gyncsm Digital Health Fair! Keep those resources and awareness messages spreading. |
 | NCI Cancer Stats @NCICancerStats Did you know high-risk HPV types can cause cervical, anal, vulvar, vaginal, penile, and oropharyngeal cancers? Watch our “Did You Know?” video, in English (https://t.co/GHteeVNG8t) and Spanish (https://t.co/bHZhe6C1Y9) to learn more! #GynCSM |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks again to all who attended and shared during our #gyncsm Digital Health Fair! Keep those resources and awareness messa… |
| Christina Lizaso @btrfly12 Always love spending time with passionate advocates. Thanks to all on #gyncsm |
| Suzie Siegel @SuzieSiegel RT @SGO_org: Happy to be of service with @GYNCancer new patient education materials, including gyn #sarcoma. #gyncsm https://t.co/xQsxxQSJ6t |
| Dee Sparacio @womenofteal RT @btrfly12: Always love spending time with passionate advocates. Thanks to all on #gyncsm |
| Christina Lizaso @btrfly12 ...and I thought I had way too many browser tabs open BEFORE #gyncsm chat - lol :) |
 | @GynOncJnls @gynoncjnls RT @LAMcAlarnenMD: To all my @SGO_org @gynoncjnls @CancerRealTalk1 colleagues, 👇 is a 💎 of information for those with #gyncancer as well as… |
| Dee Sparacio @womenofteal @btrfly12 And the #gyncsm tweet stream flew past me at times. I had to scroll backwards to finishing reading the great info. |
#GynCSM content from Twitter.