#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | IamCervivor @IamCervivor RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Georgia @_GeorgiaHurst RT @gyncsm: New to tweetchats? Read tips from #gyncsm co-moderator @womenofteal https://t.co/m5bAfRjHVr |
| Georgia @_GeorgiaHurst RT @gyncsm: Join us on Wed Sept 8th at 8pmET for our #gyncsm (gynecologic cancer) chat on Genetic Testing and Gyn Cancers. https://t.co/nDbbZmWQI7 https://t.co/bzgf5Esve7 |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Excited to be celebrating our 8th Anniversary as a community and chat! #gyncsm https://t.co/6hpM4MyiHr |
| Dee Sparacio @womenofteal RT @gyncsm: Excited to be celebrating our 8th Anniversary as a community and chat! #gyncsm https://t.co/6hpM4MyiHr |
| Georgia @_GeorgiaHurst RT @gyncsm: Excited to be celebrating our 8th Anniversary as a community and chat! #gyncsm https://t.co/6hpM4MyiHr |
| Georgia @_GeorgiaHurst RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Meg Farmer @MegFarmerCGCMBA RT @gyncsm: Excited to be celebrating our 8th Anniversary as a community and chat! #gyncsm https://t.co/6hpM4MyiHr |
| Dee Sparacio @womenofteal We appreciate the support of @drdonsdizon @DrMarkham @journeycancer @ShannonWestin @DrBeckerSchutte @temkins @subatomicdoc @SGO_org @IamCervivor @tamikafelder and the groundbreaking work of the #bcsm community @stales @DrAttai #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: We appreciate the support of @drdonsdizon @DrMarkham @journeycancer @ShannonWestin @DrBeckerSchutte @temkins @subatomicdoc @SGO_org @IamCervivor @tamikafelder and the groundbreaking work of the #bcsm community @stales @DrAttai #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We ask that all those who participate in the #gyncsm community (attend chats, share info, read out tweets and/or our blog), fill out our biannual 5-minute survey which can be found at: https://t.co/mOgcCeZ9dZ https://t.co/4mklwtCH4D |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We ask that all those who participate in the #gyncsm community (attend chats, share info, read out tweets and/or our blog), fill out our biannual 5-minute survey which can be found at: https://t.co/mOgcCeZ9dZ https://t.co/4mklwtCH4D |
| Dee Sparacio @womenofteal RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA RT @gyncsm: We ask that all those who participate in the #gyncsm community (attend chats, share info, read out tweets and/or our blog), fill out our biannual 5-minute survey which can be found at: https://t.co/mOgcCeZ9dZ https://t.co/4mklwtCH4D |
 | Christina Lizaso @btrfly12 Hi #gyncsm :) - I'm the person behind the @gyncsm handle. I'm a previvor and am passionate about peer support and community. |
| Dee Sparacio @womenofteal Dee here! Dx with #ovca Stage3B 2005, recurrence 2008, Ovarian Cancer research advocate, blogger, co-Author of “100 Questions and Answers about Ovarian cancer” & co-moderator #gyncsm |
 | Shannon Westin, MD, MPH, FASCO @ShannonWestin We appreciate you @womenofteal @btrfly12!! #gyncsm |
| IamCervivor @IamCervivor Morgan here on behalf of Cervivor, Listening tonight. Cannot wait to see all the great content! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
| Meg Farmer @MegFarmerCGCMBA @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi everyone! I’m a certified genetic counselor. My main role is with #digitalhealth company @MyGeneCounsel . I have a part time clinical role @UABGenetics and I’m also on the board of the Norma Livingston Ovarian Cancer Foundation @NLOCF #gyncsm |
| Dee Sparacio @womenofteal @IamCervivor Hi Morgan - So good to see you could join us again . Hope you are doing well. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy Chats are an open discussion and all are welcome to share from their experiences and perspectives. |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi everyone! I’m a certified genetic counselor. My main role is with #digitalhealth company @MyGeneCounsel . I have a part time clinical role @UABGenetics and I’m also on the board of the Norma Livingston Ovarian Cancer Foundation @NLOCF #gyncsm |
| Dee Sparacio @womenofteal @MegFarmerCGCMBA @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte @MyGeneCounsel @UABGenetics @nlocf We are so happy could be with us tonight. #gyncsm |
| Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm (click Latest) and include the hashtag in every tweet during the next hour to engage with others about this topic. |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information. #gyncsm |
| Georgia @_GeorgiaHurst RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm (click Latest) and include the hashtag in every tweet during the next hour to engage with others about this topic. |
| Georgia @_GeorgiaHurst RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy Chats are an open discussion and all are welcome to share from their experiences and perspectives. |
| Georgia @_GeorgiaHurst RT @gyncsm: We ask that all those who participate in the #gyncsm community (attend chats, share info, read out tweets and/or our blog), fill out our biannual 5-minute survey which can be found at: https://t.co/mOgcCeZ9dZ https://t.co/4mklwtCH4D |
| GYN Cancer | #GYNCSM @gyncsm Welcome to those joining and all those “listening in”. You can always tweet, DM or email us with questions/comments after the chat is over. Contact info on our blog: https://t.co/XYaP3OTgsG #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Welcome to those joining and all those “listening in”. You can always tweet, DM or email us with questions/comments after the chat is over. Contact info on our blog: https://t.co/XYaP3OTgsG #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight on #gyncsm we’ll be discussing “Genetic Testing and Gyn Cancers” and we are pleased to have @MegFarmerCGCMBA from @MyGeneCounsel joining as our special guest. |
| Dee Sparacio @womenofteal Thank you to all who have tweeted valuable information to our community during the past month using the #gyncsm hashtag. And a special shot out to those who helped promote tonight's chat. |
| GYN Cancer | #GYNCSM @gyncsm We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Genetic Testing and Gyn Cancers” and we are pleased to have @MegFarmerCGCMBA from @MyGeneCounsel joining as our special guest. |
| GYN Cancer | #GYNCSM @gyncsm You can find the 5 topic areas we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/dG2juXK9L2 #gyncsm |
| Meg Farmer @MegFarmerCGCMBA RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Genetic Testing and Gyn Cancers” and we are pleased to have @MegFarmerCGCMBA from @MyGeneCounsel joining as our special guest. |
 | Louise @Miultimanota1 #gyncsm Community: Genetic Testing and Gyn Cancer chat - Our 8th Ann... https://t.co/YnZVP12BSN |
| Dee Sparacio @womenofteal RT @gyncsm: You can find the 5 topic areas we’ll cover on today’s chat on our #gyncsm blog page: You can find the 5 topic areas we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/dG2juXK9L2 #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @gyncsm: You can find the 5 topic areas we’ll cover on today’s chat on our #gyncsm blog page: You can find the 5 topic areas we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/dG2juXK9L2 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T1: The topic of genetics and cancer can quickly get confusing. What is genetic testing vs. genomic testing? #gyncsm |
 | Sarah Temkin @temkins RT @gyncsm: The #gyncsm (GYNecologic Cancer Social Media) chat will get started in a few minutes! You can read about tonight’s chat and preview the topic questions on our #gyncsm blog: https://t.co/dG2juXK9L2 |
| Dee Sparacio @womenofteal RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Genetic Testing and Gyn Cancers” and we are pleased to have @MegFarmerCGCMBA from @MyGeneCounsel joining as our special guest. |
| Christina Lizaso @btrfly12 RT @gyncsm: T1: T1: The topic of genetics and cancer can quickly get confusing. What is genetic testing vs. genomic testing? #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm @MyGeneCounsel Thanks for the invite #gyncsm ! Looking forward to it. 🧬🧬🧬 |
| Dee Sparacio @womenofteal RT @gyncsm: T1: T1: The topic of genetics and cancer can quickly get confusing. What is genetic testing vs. genomic testing? #gyncsm |
| Georgia @_GeorgiaHurst #gyncsm Good evening, I'm a #Lynchsyndrome previvor -- I try hard to keep everyone abreast to the latest Ls news on Twitter and write about life as an Ls previvor for @curetoday. |
| Georgia @_GeorgiaHurst RT @gyncsm: T1: T1: The topic of genetics and cancer can quickly get confusing. What is genetic testing vs. genomic testing? #gyncsm |
| Georgia @_GeorgiaHurst RT @gyncsm: You can find the 5 topic areas we’ll cover on today’s chat on our #gyncsm blog page: You can find the 5 topic areas we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/dG2juXK9L2 #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T1: Genetic (germline) testing looks for hereditary mutations linked with increased risk of cancer. Genomic (somatic) testing looks for mutations in the tumor/cancer that may be useful for targeted cancer treatment #gyncsm |
| Georgia @_GeorgiaHurst RT @gyncsm: Tonight on #gyncsm we’ll be discussing “Genetic Testing and Gyn Cancers” and we are pleased to have @MegFarmerCGCMBA from @MyGeneCounsel joining as our special guest. |
| Dee Sparacio @womenofteal @_GeorgiaHurst @curetoday Hi Georgia - So happy to see you tonight! #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T1: @gyncsm T1: Genetic (germline) testing looks for hereditary mutations linked with increased risk of cancer. Genomic (somatic) testing looks for mutations in the tumor/cancer that may be useful for targeted cancer treatment #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T1: @gyncsm T1: Genetic (germline) testing looks for hereditary mutations linked with increased risk of cancer. Genomic (somatic) testing looks for mutations in the tumor/cancer that may be useful for targeted cancer treatment #gyncsm |
| Dee Sparacio @womenofteal @Miultimanota1 Yes just started #gyncsm |
| Dee Sparacio @womenofteal @Miultimanota1 Welcome to the #gyncsm community Louise! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm @Miultimanota1 Welcome Louise :) We are getting started with our first topic. In the search bar, put in #gyncsm and click Latest to follow along. You may have to click to refresh. We also post a summary on our blog after the chat. |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin A1: genetics are what is going on in ALL your cells ( often called germline testing). Genomic testing is specific to the tumor - it can be obtained through tissue or blood! #gyncsm |
| IamCervivor @IamCervivor RT @MegFarmerCGCMBA: @gyncsm T1: @gyncsm T1: Genetic (germline) testing looks for hereditary mutations linked with increased risk of cancer. Genomic (somatic) testing looks for mutations in the tumor/cancer that may be useful for targeted cancer treatment #gyncsm |
| Dee Sparacio @womenofteal RT @ShannonWestin: A1: A1: genetics are what is going on in ALL your cells ( often called germline testing). Genomic testing is specific to the tumor - it can be obtained through tissue or blood! #gyncsm |
| Georgia @_GeorgiaHurst RT @ShannonWestin: A1: A1: genetics are what is going on in ALL your cells ( often called germline testing). Genomic testing is specific to the tumor - it can be obtained through tissue or blood! #gyncsm |
 | Ishwaria Subbiah, MD MS FASCO @IshwariaMD @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi from Houston, #gyncsm! #SupportiveCare #PalliativeCare physician providing comprehensive symptom management during #cancer treatment! |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @MegFarmerCGCMBA: @gyncsm T1: @gyncsm T1: Genetic (germline) testing looks for hereditary mutations linked with increased risk of cancer. Genomic (somatic) testing looks for mutations in the tumor/cancer that may be useful for targeted cancer treatment #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2a: Mutations in what genes are known to be associated with ovarian cancer? #gyncsm |
| Dee Sparacio @womenofteal @MegFarmerCGCMBA @gyncsm Is genomic testing as common as germline testing? #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @womenofteal Hi Dee!! #gyncsm |
| Dee Sparacio @womenofteal @IshwariaMD @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi Ishwaria - Welcome. Thanks so much for joining us tonight #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T2a: To start, mutations in many genes are linked with hereditary risk for ovarian cancer. Most people think of #BRCA1 and #BRCA2 first because mutations in these genes account for the most cases of hereditary ovarian cancer. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2a: T2a: Mutations in what genes are known to be associated with ovarian cancer? #gyncsm |
| Georgia @_GeorgiaHurst RT @womenofteal: @MegFarmerCGCMBA @gyncsm Is genomic testing as common as germline testing? #gyncsm |
| Georgia @_GeorgiaHurst RT @gyncsm: T2a: T2a: Mutations in what genes are known to be associated with ovarian cancer? #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T2a: @gyncsm T2a: To start, mutations in many genes are linked with hereditary risk for ovarian cancer. Most people think of #BRCA1 and #BRCA2 first because mutations in these genes account for the most cases of hereditary ovarian cancer. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T2a: (Cont…) Other genes linked with hereditary ovarian cancer include #Lynchsyndrome genes, #BRIP1 , #RAD51C , #RAD51D , #PALB2 and more. Importantly not all genes are equal when it comes to level of risk and @NCCN guidelines for risk reducing options. #gyncsm |
| Christina Lizaso @btrfly12 RT @MegFarmerCGCMBA: @gyncsm T2a: @gyncsm T2a: To start, mutations in many genes are linked with hereditary risk for ovarian cancer. Most people think of #BRCA1 and #BRCA2 first because mutations in these genes account for the most cases of hereditary ovarian cancer. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T2a: @gyncsm T2a: To start, mutations in many genes are linked with hereditary risk for ovarian cancer. Most people think of #BRCA1 and #BRCA2 first because mutations in these genes account for the most cases of hereditary ovarian cancer. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T2a: @gyncsm T2a: (Cont…) Other genes linked with hereditary ovarian cancer include #Lynchsyndrome genes, #BRIP1 , #RAD51C , #RAD51D , #PALB2 and more. Importantly not all genes are equal when it comes to level of risk and @NCCN guidelines for risk reducing options. #gyncsm |
| Christina Lizaso @btrfly12 RT @MegFarmerCGCMBA: @gyncsm T2a: @gyncsm T2a: (Cont…) Other genes linked with hereditary ovarian cancer include #Lynchsyndrome genes, #BRIP1 , #RAD51C , #RAD51D , #PALB2 and more. Importantly not all genes are equal when it comes to level of risk and @NCCN guidelines for risk reducing options. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T2a: @gyncsm T2a: (Cont…) Other genes linked with hereditary ovarian cancer include #Lynchsyndrome genes, #BRIP1 , #RAD51C , #RAD51D , #PALB2 and more. Importantly not all genes are equal when it comes to level of risk and @NCCN guidelines for risk reducing options. #gyncsm |
| IamCervivor @IamCervivor RT @MegFarmerCGCMBA: @gyncsm T2a: @gyncsm T2a: To start, mutations in many genes are linked with hereditary risk for ovarian cancer. Most people think of #BRCA1 and #BRCA2 first because mutations in these genes account for the most cases of hereditary ovarian cancer. #gyncsm |
| IamCervivor @IamCervivor RT @MegFarmerCGCMBA: @gyncsm T2a: @gyncsm T2a: (Cont…) Other genes linked with hereditary ovarian cancer include #Lynchsyndrome genes, #BRIP1 , #RAD51C , #RAD51D , #PALB2 and more. Importantly not all genes are equal when it comes to level of risk and @NCCN guidelines for risk reducing options. #gyncsm |
 | Cancer Hope Network @CancerHopeNet RT @ShannonWestin: A1: A1: genetics are what is going on in ALL your cells ( often called germline testing). Genomic testing is specific to the tumor - it can be obtained through tissue or blood! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2b: Mutations in what genes are known to be associated with endometrial cancer? #gyncsm |
| Cancer Hope Network @CancerHopeNet Let's do this! 🥰 #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @womenofteal @gyncsm Many people have genomic testing as they work with their healthcare teams to make treatment decisions but sometimes they are not aware it was part of their workup. Be sure to ask your doctors about these results. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin A2: the most common genetic mutations associated with #ovariancancer are #BRCA 1 or 2. We can also see increased risk of cancer for more rare mutations #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2b: T2b: Mutations in what genes are known to be associated with endometrial cancer? #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @MegFarmerCGCMBA: @gyncsm T2a: @gyncsm T2a: (Cont…) Other genes linked with hereditary ovarian cancer include #Lynchsyndrome genes, #BRIP1 , #RAD51C , #RAD51D , #PALB2 and more. Importantly not all genes are equal when it comes to level of risk and @NCCN guidelines for risk reducing options. #gyncsm |
| Dee Sparacio @womenofteal Excellent advice- #gyncsm |
 | Sarah Cassidy @CassidyFish2 RT @MegFarmerCGCMBA: @womenofteal @gyncsm Many people have genomic testing as they work with their healthcare teams to make treatment decisions but sometimes they are not aware it was part of their workup. Be sure to ask your doctors about these results. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T2b: To start, mutations in multiple genes are linked with hereditary endometrial/uterine cancer. Mutations in #Lynchsyndrome genes (MLH1, MSH2, MSH6, PMS2, EPCAM) account for the most cases of hereditary endometrial cancer. Risk varies significantly by gene. #gyncsm |
| Dee Sparacio @womenofteal RT @ShannonWestin: A2: A2: the most common genetic mutations associated with #ovariancancer are #BRCA 1 or 2. We can also see increased risk of cancer for more rare mutations #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T2b: (Cont…) Other genes linked with hereditary uterine cancer include #PTEN ( #CowdenSyndrome ) and #STK11 ( #PeutzJeghersSyndrome ). #POLD1 and others may be associated but research is ongoing. #gyncsm https://t.co/GDe1AyISZZ |
| Sarah Temkin @temkins RT @ShannonWestin: A2: A2: the most common genetic mutations associated with #ovariancancer are #BRCA 1 or 2. We can also see increased risk of cancer for more rare mutations #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T2b: @gyncsm T2b: To start, mutations in multiple genes are linked with hereditary endometrial/uterine cancer. Mutations in #Lynchsyndrome genes (MLH1, MSH2, MSH6, PMS2, EPCAM) account for the most cases of hereditary endometrial cancer. Risk varies significantly by gene. #gyncsm |
| Christina Lizaso @btrfly12 One company's report includes #ovariancancer in their Chek2 gene risk and another company does not... fun. But really it just shows there is still a lot of research to be done outside of BRCA and the importance of finding experts to advise your specific situation. #gyncsm |
| Georgia @_GeorgiaHurst Going on right now on Twitter, please join us! Just follow along with #gyncsm. @MegFarmerCGCMBA from @MyGeneCounsel is on... #Lynchsyndrome #BRCA #Genetictesting https://t.co/twoiww82I0 #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T2b: @gyncsm T2b: (Cont…) Other genes linked with hereditary uterine cancer include #PTEN ( #CowdenSyndrome ) and #STK11 ( #PeutzJeghersSyndrome ). #POLD1 and others may be associated but research is ongoing. #gyncsm https://t.co/GDe1AyISZZ |
| Sarah Cassidy @CassidyFish2 Important to know there's more than #BRCA to watch for and ask about. #gyncsm #moreyouknow |
| Christina Lizaso @btrfly12 RT @_GeorgiaHurst: Going on right now on Twitter, please join us! Just follow along with #gyncsm. @MegFarmerCGCMBA from @MyGeneCounsel is on... #Lynchsyndrome #BRCA #Genetictesting https://t.co/twoiww82I0 #gyncsm |
| Sarah Temkin @temkins RT @MegFarmerCGCMBA: @gyncsm T2b: @gyncsm T2b: To start, mutations in multiple genes are linked with hereditary endometrial/uterine cancer. Mutations in #Lynchsyndrome genes (MLH1, MSH2, MSH6, PMS2, EPCAM) account for the most cases of hereditary endometrial cancer. Risk varies significantly by gene. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: One company's report includes #ovariancancer in their Chek2 gene risk and another company does not... fun. But really it just shows there is still a lot of research to be done outside of BRCA and the importance of finding experts to advise your specific situation. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @CassidyFish2 Definitely! So someone who only had #BRCA testing in past may consider discussing updated testing with their doctor or genetic counselor. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2c: Are mutations in any genes known to be associated with other gynecologic cancers? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2c: T2c: Are mutations in any genes known to be associated with other gynecologic cancers? #gyncsm |
| Georgia @_GeorgiaHurst RT @gyncsm: T2c: T2c: Are mutations in any genes known to be associated with other gynecologic cancers? #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @CassidyFish2 Definitely! So someone who only had #BRCA testing in past may consider discussing updated testing with their doctor or genetic counselor. #gyncsm |
| Georgia @_GeorgiaHurst RT @btrfly12: One company's report includes #ovariancancer in their Chek2 gene risk and another company does not... fun. But really it just shows there is still a lot of research to be done outside of BRCA and the importance of finding experts to advise your specific situation. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T2b: @gyncsm T2b: (Cont…) Other genes linked with hereditary uterine cancer include #PTEN ( #CowdenSyndrome ) and #STK11 ( #PeutzJeghersSyndrome ). #POLD1 and others may be associated but research is ongoing. #gyncsm https://t.co/GDe1AyISZZ |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T2b: @gyncsm T2b: To start, mutations in multiple genes are linked with hereditary endometrial/uterine cancer. Mutations in #Lynchsyndrome genes (MLH1, MSH2, MSH6, PMS2, EPCAM) account for the most cases of hereditary endometrial cancer. Risk varies significantly by gene. #gyncsm |
| Georgia @_GeorgiaHurst RT @womenofteal: Excellent advice- #gyncsm |
| Christina Lizaso @btrfly12 @MegFarmerCGCMBA @CassidyFish2 #gyncsm this is how they discovered the Chek2 in my family. My aunt's wonderful care team re-tested her several years after a recurrence. |
| Georgia @_GeorgiaHurst RT @ShannonWestin: A2: A2: the most common genetic mutations associated with #ovariancancer are #BRCA 1 or 2. We can also see increased risk of cancer for more rare mutations #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @womenofteal @gyncsm Many people have genomic testing as they work with their healthcare teams to make treatment decisions but sometimes they are not aware it was part of their workup. Be sure to ask your doctors about these results. #gyncsm |
| Georgia @_GeorgiaHurst RT @gyncsm: T2b: T2b: Mutations in what genes are known to be associated with endometrial cancer? #gyncsm |
| Dee Sparacio @womenofteal More important advice #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @btrfly12 Good point. Labs and providers might use different studies when estimating associated cancer risks. @NCCN guidelines currently consider ovarian cancer risk as "not established" in CHEK2, but agree that more research is needed! #gyncsm |
| Christina Lizaso @btrfly12 RT @MegFarmerCGCMBA: @btrfly12 Good point. Labs and providers might use different studies when estimating associated cancer risks. @NCCN guidelines currently consider ovarian cancer risk as "not established" in CHEK2, but agree that more research is needed! #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T2c: Less commonly, but yes. For instance you can see #CervicalCancer in association with mutations in #STK11 ( #PeutzJeghersSyndrome ) and genes linked with #FanconiAnemia and #DyskeratosisCongenita . Other rare GYN tumors can also have a hereditary cause. #gyncsm |
| Dee Sparacio @womenofteal @MegFarmerCGCMBA @CassidyFish2 My first test was in 2005. I was retested last year on the advice of my genetics counselor. #gyncsm |
| Sarah Temkin @temkins A1: study of genes and their roles in inheritance vs. the study of all of a person's genes (the genome), including interactions of those genes with each other and with the person's environment #gyncsm https://t.co/W4miZsYMKt |
| Sarah Cassidy @CassidyFish2 @btrfly12 @MegFarmerCGCMBA And now you're paying their help forward helping others. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T2c: @gyncsm T2c: Less commonly, but yes. For instance you can see #CervicalCancer in association with mutations in #STK11 ( #PeutzJeghersSyndrome ) and genes linked with #FanconiAnemia and #DyskeratosisCongenita . Other rare GYN tumors can also have a hereditary cause. #gyncsm |
| Christina Lizaso @btrfly12 RT @temkins: A1: A1: study of genes and their roles in inheritance vs. the study of all of a person's genes (the genome), including interactions of those genes with each other and with the person's environment #gyncsm https://t.co/W4miZsYMKt |
| Dee Sparacio @womenofteal RT @temkins: A1: A1: study of genes and their roles in inheritance vs. the study of all of a person's genes (the genome), including interactions of those genes with each other and with the person's environment #gyncsm https://t.co/W4miZsYMKt |
| GYN Cancer | #GYNCSM @gyncsm T3a: What types of genetic testing are used to find hereditary reasons for gynecologic cancer? #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @womenofteal: More important advice #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T3a: T3a: What types of genetic testing are used to find hereditary reasons for gynecologic cancer? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T3a: T3a: What types of genetic testing are used to find hereditary reasons for gynecologic cancer? #gyncsm |
| Georgia @_GeorgiaHurst RT @gyncsm: T3a: T3a: What types of genetic testing are used to find hereditary reasons for gynecologic cancer? #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T3a: To start, in the past, #GeneticCounselors and doctors considered the cancers in a person/family and tested for the most likely condition first- like we've discussed. But sometimes that didn’t identify a cause, and it wasn't always possible to order additional tests. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T2c: @gyncsm T2c: Less commonly, but yes. For instance you can see #CervicalCancer in association with mutations in #STK11 ( #PeutzJeghersSyndrome ) and genes linked with #FanconiAnemia and #DyskeratosisCongenita . Other rare GYN tumors can also have a hereditary cause. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @btrfly12 Good point. Labs and providers might use different studies when estimating associated cancer risks. @NCCN guidelines currently consider ovarian cancer risk as "not established" in CHEK2, but agree that more research is needed! #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T3a: (Cont…) Now multigene panels that test several genes at once are more common. Number of genes included varies widely. Panels may also be focused (ex: only gyn ca genes) or broader. Results can be complicated but GCs and other tools can help #gyncsm https://t.co/Zq1BOoGjyG |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T3a: @gyncsm T3a: (Cont…) Now multigene panels that test several genes at once are more common. Number of genes included varies widely. Panels may also be focused (ex: only gyn ca genes) or broader. Results can be complicated but GCs and other tools can help #gyncsm https://t.co/Zq1BOoGjyG |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T3a: @gyncsm T3a: To start, in the past, #GeneticCounselors and doctors considered the cancers in a person/family and tested for the most likely condition first- like we've discussed. But sometimes that didn’t identify a cause, and it wasn't always possible to order additional tests. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T3a: @gyncsm T3a: To start, in the past, #GeneticCounselors and doctors considered the cancers in a person/family and tested for the most likely condition first- like we've discussed. But sometimes that didn’t identify a cause, and it wasn't always possible to order additional tests. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T3a: @gyncsm T3a: (Cont…) Now multigene panels that test several genes at once are more common. Number of genes included varies widely. Panels may also be focused (ex: only gyn ca genes) or broader. Results can be complicated but GCs and other tools can help #gyncsm https://t.co/Zq1BOoGjyG |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm |
| Christina Lizaso @btrfly12 Genetic counseling can be vital in the process. The science is moving fast and there is a lot to digest. You can search for one using this tool from NSGC https://t.co/qm2inMhi9z #gyncsm |
| Meg Farmer @MegFarmerCGCMBA RT @btrfly12: Genetic counseling can be vital in the process. The science is moving fast and there is a lot to digest. You can search for one using this tool from NSGC https://t.co/qm2inMhi9z #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T3b: Who is recommended to get genetic testing for hereditary gynecologic cancer? #gyncsm |
| Georgia @_GeorgiaHurst RT @gyncsm: T3b: T3b: Who is recommended to get genetic testing for hereditary gynecologic cancer? #gyncsm |
| Georgia @_GeorgiaHurst RT @btrfly12: Genetic counseling can be vital in the process. The science is moving fast and there is a lot to digest. You can search for one using this tool from NSGC https://t.co/qm2inMhi9z #gyncsm |
| Meg Farmer @MegFarmerCGCMBA Agreed. And fantastic that you can use NSGC's "Find a Genetic Counselor" tool to find a GC to speak with in-person or by #telehealth . #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: Agreed. And fantastic that you can use NSGC's "Find a Genetic Counselor" tool to find a GC to speak with in-person or by #telehealth . #gyncsm |
| Dee Sparacio @womenofteal @MegFarmerCGCMBA @gyncsm My genetic counselor at @RutgersCancer was very helpful in explaining which tests were best for me to have. Then a few weeks later she explained the results . #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T3b: To start, according to the @NCCN , #GeneticTesting should automatically be considered for those with epithelial #ovariancancer or #endometrialcancer younger than 50. #gyncsm https://t.co/QVemXGk8Gu https://t.co/2pfMrwwNkR |
| Dee Sparacio @womenofteal RT @gyncsm: T3b: T3b: Who is recommended to get genetic testing for hereditary gynecologic cancer? #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: Agreed. And fantastic that you can use NSGC's "Find a Genetic Counselor" tool to find a GC to speak with in-person or by #telehealth . #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T3b: (Cont…) #GeneticTesting should also be considered if we see following combinations of cancer in one person or branch of a family tree: colon/endometrial/ovarian/other GI cancers or breast/ovarian/prostate/pancreatic cancers #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T3b: @gyncsm T3b: To start, according to the @NCCN , #GeneticTesting should automatically be considered for those with epithelial #ovariancancer or #endometrialcancer younger than 50. #gyncsm https://t.co/QVemXGk8Gu https://t.co/2pfMrwwNkR |
| Christina Lizaso @btrfly12 Peer support can be important too as you navigate genetic counseling and testing as well. There are lots of great online communities. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T3b: @gyncsm T3b: (Cont…) #GeneticTesting should also be considered if we see following combinations of cancer in one person or branch of a family tree: colon/endometrial/ovarian/other GI cancers or breast/ovarian/prostate/pancreatic cancers #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T3b (Last…) If you’re concerned about hereditary cancer risk based on this or other personal/family cancer history, a #GeneticCounselor can help determine whether genetic testing is appropriate, best person in family to test, and best test. #gyncsm |
| Christina Lizaso @btrfly12 RT @MegFarmerCGCMBA: @gyncsm T3b: @gyncsm T3b: To start, according to the @NCCN , #GeneticTesting should automatically be considered for those with epithelial #ovariancancer or #endometrialcancer younger than 50. #gyncsm https://t.co/QVemXGk8Gu https://t.co/2pfMrwwNkR |
| Christina Lizaso @btrfly12 RT @MegFarmerCGCMBA: @gyncsm T3b: @gyncsm T3b: (Cont…) #GeneticTesting should also be considered if we see following combinations of cancer in one person or branch of a family tree: colon/endometrial/ovarian/other GI cancers or breast/ovarian/prostate/pancreatic cancers #gyncsm |
| IamCervivor @IamCervivor RT @MegFarmerCGCMBA: @gyncsm T2c: @gyncsm T2c: Less commonly, but yes. For instance you can see #CervicalCancer in association with mutations in #STK11 ( #PeutzJeghersSyndrome ) and genes linked with #FanconiAnemia and #DyskeratosisCongenita . Other rare GYN tumors can also have a hereditary cause. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm https://t.co/EMzsC9XrFc #gyncsm |
| Dee Sparacio @womenofteal T3B @asco has this guideline for testing women with an epithelial ovarian cancer dx - Germline and Somatic Tumor Testing in Epithelial Ovarian Cancer: ASCO Guideline https://t.co/WlXjyag7Im #gyncsm |
| Christina Lizaso @btrfly12 I keep hearing that there are still lot of ovarian cancer patients who aren't being offered genetic testing. Which is frustrating. Changing practice is slow. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm https://t.co/EMzsC9XrFc #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T3B @asco has this guideline for testing women with an epithelial ovarian cancer dx - Germline and Somatic Tumor Testing in Epithelial Ovarian Cancer: ASCO Guideline https://t.co/WlXjyag7Im #gyncsm |
| IamCervivor @IamCervivor RT @MegFarmerCGCMBA: @gyncsm T3b: @gyncsm T3b: (Cont…) #GeneticTesting should also be considered if we see following combinations of cancer in one person or branch of a family tree: colon/endometrial/ovarian/other GI cancers or breast/ovarian/prostate/pancreatic cancers #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4a: Do different mutations appear in tumors (genomic testing) than may appear in genetic tests? #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @btrfly12 Yes, unfortunately multiple studies have shown that many ovarian cancer patients are not offered genetic testing, and rates are even lower for people of color. We have work to do. #gyncsm #GCchat |
| Christina Lizaso @btrfly12 RT @gyncsm: T4a: T4a: Do different mutations appear in tumors (genomic testing) than may appear in genetic tests? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4a: T4a: Do different mutations appear in tumors (genomic testing) than may appear in genetic tests? #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T4a: Yes. All tumors have mutations. Most of these are only in the tumor (somatic) rather than there from birth and usually in all of a person’s cells (germline/hereditary). For every cancer type, there are genes in which we are most likely to see somatic mutations #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @btrfly12 Yes, unfortunately multiple studies have shown that many ovarian cancer patients are not offered genetic testing, and rates are even lower for people of color. We have work to do. #gyncsm #GCchat |
| Christina Lizaso @btrfly12 RT @MegFarmerCGCMBA: @btrfly12 Yes, unfortunately multiple studies have shown that many ovarian cancer patients are not offered genetic testing, and rates are even lower for people of color. We have work to do. #gyncsm #GCchat |
| IamCervivor @IamCervivor RT @MegFarmerCGCMBA: @btrfly12 Yes, unfortunately multiple studies have shown that many ovarian cancer patients are not offered genetic testing, and rates are even lower for people of color. We have work to do. #gyncsm #GCchat |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T4a: @gyncsm T4a: Yes. All tumors have mutations. Most of these are only in the tumor (somatic) rather than there from birth and usually in all of a person’s cells (germline/hereditary). For every cancer type, there are genes in which we are most likely to see somatic mutations #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T4a: (Cont…) Just like multigene genetic tests are often used now, genomic tests usually test many genes at once too so oncologists have more info to work with when considering how a cancer is behaving and best treatment plans #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T4a: @gyncsm T4a: (Cont…) Just like multigene genetic tests are often used now, genomic tests usually test many genes at once too so oncologists have more info to work with when considering how a cancer is behaving and best treatment plans #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T4a: @gyncsm T4a: (Cont…) Just like multigene genetic tests are often used now, genomic tests usually test many genes at once too so oncologists have more info to work with when considering how a cancer is behaving and best treatment plans #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T4a: @gyncsm T4a: Yes. All tumors have mutations. Most of these are only in the tumor (somatic) rather than there from birth and usually in all of a person’s cells (germline/hereditary). For every cancer type, there are genes in which we are most likely to see somatic mutations #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @btrfly12 Yes, unfortunately multiple studies have shown that many ovarian cancer patients are not offered genetic testing, and rates are even lower for people of color. We have work to do. #gyncsm #GCchat |
| Georgia @_GeorgiaHurst RT @gyncsm: T4a: T4a: Do different mutations appear in tumors (genomic testing) than may appear in genetic tests? #gyncsm |
| Georgia @_GeorgiaHurst RT @btrfly12: I keep hearing that there are still lot of ovarian cancer patients who aren't being offered genetic testing. Which is frustrating. Changing practice is slow. #gyncsm |
| Georgia @_GeorgiaHurst RT @womenofteal: T3B @asco has this guideline for testing women with an epithelial ovarian cancer dx - Germline and Somatic Tumor Testing in Epithelial Ovarian Cancer: ASCO Guideline https://t.co/WlXjyag7Im #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm https://t.co/EMzsC9XrFc #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T3b (Last…) If you’re concerned about hereditary cancer risk based on this or other personal/family cancer history, a #GeneticCounselor can help determine whether genetic testing is appropriate, best person in family to test, and best test. #gyncsm |
| Georgia @_GeorgiaHurst RT @btrfly12: Peer support can be important too as you navigate genetic counseling and testing as well. There are lots of great online communities. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T3b: @gyncsm T3b: (Cont…) #GeneticTesting should also be considered if we see following combinations of cancer in one person or branch of a family tree: colon/endometrial/ovarian/other GI cancers or breast/ovarian/prostate/pancreatic cancers #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: I keep hearing that there are still lot of ovarian cancer patients who aren't being offered genetic testing. Which is frustrating. Changing practice is slow. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T3b: @gyncsm T3b: To start, according to the @NCCN , #GeneticTesting should automatically be considered for those with epithelial #ovariancancer or #endometrialcancer younger than 50. #gyncsm https://t.co/QVemXGk8Gu https://t.co/2pfMrwwNkR |
| Christina Lizaso @btrfly12 @healWRITEnow YES. I mean, we all knew for years that something was going on in the family. Waiting, waiting, waiting for the science to give it a name. Now waiting, waiting for better info on what to do once know. #gyncsm |
| Sarah Temkin @temkins Every #ovariancancer patient should have genetic testing at the time of diagnosis. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4b: Is genetic testing ever recommended because of genomic test results? #gyncsm |
| Sarah Temkin @temkins RT @MegFarmerCGCMBA: @gyncsm https://t.co/EMzsC9XrFc #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4b: T4b: Is genetic testing ever recommended because of genomic test results? #gyncsm |
| Sarah Temkin @temkins RT @MegFarmerCGCMBA: @gyncsm T3b: @gyncsm T3b: To start, according to the @NCCN , #GeneticTesting should automatically be considered for those with epithelial #ovariancancer or #endometrialcancer younger than 50. #gyncsm https://t.co/QVemXGk8Gu https://t.co/2pfMrwwNkR |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T4b: To start, yes. There can be clues in somatic test results that a person may actually have a hereditary mutation. For example, if a #BRCA mutation is seen in any tumor type, or if a mutation is seen at a higher level in a tumor than would be expected if just somatic. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T4b: @gyncsm T4b: To start, yes. There can be clues in somatic test results that a person may actually have a hereditary mutation. For example, if a #BRCA mutation is seen in any tumor type, or if a mutation is seen at a higher level in a tumor than would be expected if just somatic. #gyncsm |
| Georgia @_GeorgiaHurst RT @gyncsm: T4b: T4b: Is genetic testing ever recommended because of genomic test results? #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T4b: @gyncsm T4b: To start, yes. There can be clues in somatic test results that a person may actually have a hereditary mutation. For example, if a #BRCA mutation is seen in any tumor type, or if a mutation is seen at a higher level in a tumor than would be expected if just somatic. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T4b: (Cont…) Your doctor or genetic counselor can help clarify and develop a plan for hereditary genetic testing if such clues come up in somatic testing. Check out this blog on the subject from @InformedDNA #gyncsm https://t.co/3gz2SXr4md |
| Christina Lizaso @btrfly12 @EtkinKramer @_GeorgiaHurst Oh yes. #gyncsm My brain about exploded when I found out there were a million sub-types of CHEK2 (and so also all the other ones). I "lucked out" with the most common one so have a slightly larger sliver of a chance at future research. |
| Meg Farmer @MegFarmerCGCMBA RT @temkins: Every #ovariancancer patient should have genetic testing at the time of diagnosis. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T4b: @gyncsm T4b: (Cont…) Your doctor or genetic counselor can help clarify and develop a plan for hereditary genetic testing if such clues come up in somatic testing. Check out this blog on the subject from @InformedDNA #gyncsm https://t.co/3gz2SXr4md |
| IamCervivor @IamCervivor RT @MegFarmerCGCMBA: @gyncsm T4b: @gyncsm T4b: To start, yes. There can be clues in somatic test results that a person may actually have a hereditary mutation. For example, if a #BRCA mutation is seen in any tumor type, or if a mutation is seen at a higher level in a tumor than would be expected if just somatic. #gyncsm |
| IamCervivor @IamCervivor RT @MegFarmerCGCMBA: @gyncsm T4b: @gyncsm T4b: (Cont…) Your doctor or genetic counselor can help clarify and develop a plan for hereditary genetic testing if such clues come up in somatic testing. Check out this blog on the subject from @InformedDNA #gyncsm https://t.co/3gz2SXr4md |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T4b: @gyncsm T4b: (Cont…) Your doctor or genetic counselor can help clarify and develop a plan for hereditary genetic testing if such clues come up in somatic testing. Check out this blog on the subject from @InformedDNA #gyncsm https://t.co/3gz2SXr4md |
| Sarah Temkin @temkins @MegFarmerCGCMBA @gyncsm Or for patients with endometrial cancer who have abnormal MMR (mismatch repair genes) - genetic testing for Lynch syndrome may be recommended. #gyncsm. |
| Sarah Cassidy @CassidyFish2 RT @MegFarmerCGCMBA: @gyncsm T4b: @gyncsm T4b: (Cont…) Your doctor or genetic counselor can help clarify and develop a plan for hereditary genetic testing if such clues come up in somatic testing. Check out this blog on the subject from @InformedDNA #gyncsm https://t.co/3gz2SXr4md |
 | Joel YR @YnfaYr RT @agz_eriksson: |
| GYN Cancer | #GYNCSM @gyncsm T5: What are some of the benefits of genetic and genomic testing? #gyncsm |
| Dee Sparacio @womenofteal RT @temkins: @MegFarmerCGCMBA @gyncsm Or for patients with endometrial cancer who have abnormal MMR (mismatch repair genes) - genetic testing for Lynch syndrome may be recommended. #gyncsm. |
| Georgia @_GeorgiaHurst RT @gyncsm: T5: T5: What are some of the benefits of genetic and genomic testing? #gyncsm |
| Georgia @_GeorgiaHurst RT @temkins: @MegFarmerCGCMBA @gyncsm Or for patients with endometrial cancer who have abnormal MMR (mismatch repair genes) - genetic testing for Lynch syndrome may be recommended. #gyncsm. |
| Dee Sparacio @womenofteal @MegFarmerCGCMBA @gyncsm I've heard the term BRCA wild type. What does that mean? #gyncsm |
 | Your Fav Virtual Doctor 🩺 @DrCSWilliam RT @MegFarmerCGCMBA: @gyncsm T4b: @gyncsm T4b: (Cont…) Your doctor or genetic counselor can help clarify and develop a plan for hereditary genetic testing if such clues come up in somatic testing. Check out this blog on the subject from @InformedDNA #gyncsm https://t.co/3gz2SXr4md |
| Dee Sparacio @womenofteal RT @gyncsm: T5: T5: What are some of the benefits of genetic and genomic testing? #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @btrfly12 @EtkinKramer @_GeorgiaHurst We're learning more about specific mutations/variants within genes every day. We call these "genotype phenotype correlations". With time, we hope we'll be able to give more specific risks and recommendations down to the mutation-level rather than the broader gene level. #gyncsm |
| Your Fav Virtual Doctor 🩺 @DrCSWilliam RT @temkins: Every #ovariancancer patient should have genetic testing at the time of diagnosis. #gyncsm |
| Christina Lizaso @btrfly12 T5: I'm really grateful to know about my genetic mutation. It is hard of course but overall I'm glad I was tested. There are many benefits for yourself and those related to you in testing. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @btrfly12 @EtkinKramer @_GeorgiaHurst We're learning more about specific mutations/variants within genes every day. We call these "genotype phenotype correlations". With time, we hope we'll be able to give more specific risks and recommendations down to the mutation-level rather than the broader gene level. #gyncsm |
| Georgia @_GeorgiaHurst RT @btrfly12: T5: T5: I'm really grateful to know about my genetic mutation. It is hard of course but overall I'm glad I was tested. There are many benefits for yourself and those related to you in testing. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @womenofteal @gyncsm "Wild type" means the most typical form of a gene, so a gene without a mutation. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @womenofteal @gyncsm "Wild type" means the most typical form of a gene, so a gene without a mutation. #gyncsm |
| Georgia @_GeorgiaHurst RT @womenofteal: @MegFarmerCGCMBA @gyncsm I've heard the term BRCA wild type. What does that mean? #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @btrfly12 @EtkinKramer @_GeorgiaHurst We're learning more about specific mutations/variants within genes every day. We call these "genotype phenotype correlations". With time, we hope we'll be able to give more specific risks and recommendations down to the mutation-level rather than the broader gene level. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T5: To start, genomic (somatic) testing can help oncologists understand how a cancer behaves and potentially identify targeted treatments #gyncsm #precisionmedicine |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T5: (Cont…) If someone has cancer, germline genetic testing may identify cause, influence treatment, help understand risk of future cancers, and be valuable info for family. It is often best for a family to start genetic testing in a relative with cancer if possible. #gyncsm |
| Dee Sparacio @womenofteal @gyncsm In some cases therapies targeting a mutation are available. eg. PARP for BRCA mutations in #ovca. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T5: @gyncsm T5: (Cont…) If someone has cancer, germline genetic testing may identify cause, influence treatment, help understand risk of future cancers, and be valuable info for family. It is often best for a family to start genetic testing in a relative with cancer if possible. #gyncsm |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T5: @gyncsm T5: To start, genomic (somatic) testing can help oncologists understand how a cancer behaves and potentially identify targeted treatments #gyncsm #precisionmedicine |
| Christina Lizaso @btrfly12 Definitely a lot goes into the decision to get tested before or after diagnosis. That's where genetic counselors can be so valuable. There are also wonderful groups like @FacingOurRisk that can help you think through the legal/insurance/etc. issues and beyond. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm T5: (Last…) Genetic (germline) testing can be helpful for those without cancer too if hereditary cancer is suspected in a family. If a mutation is identified, individualized plans can be made for early cancer detection, cancer risk reduction, and family planning. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T5: @gyncsm T5: To start, genomic (somatic) testing can help oncologists understand how a cancer behaves and potentially identify targeted treatments #gyncsm #precisionmedicine |
| Georgia @_GeorgiaHurst RT @womenofteal: @gyncsm In some cases therapies targeting a mutation are available. eg. PARP for BRCA mutations in #ovca. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @gyncsm T5: @gyncsm T5: (Cont…) If someone has cancer, germline genetic testing may identify cause, influence treatment, help understand risk of future cancers, and be valuable info for family. It is often best for a family to start genetic testing in a relative with cancer if possible. #gyncsm |
| IamCervivor @IamCervivor RT @MegFarmerCGCMBA: @gyncsm T5: @gyncsm T5: To start, genomic (somatic) testing can help oncologists understand how a cancer behaves and potentially identify targeted treatments #gyncsm #precisionmedicine |
| Meg Farmer @MegFarmerCGCMBA @btrfly12 @FacingOurRisk Agreed. Concerns about #genetictesting , health insurance, life insurance, and other policy types are common. Check out this guide on protections and exceptions of the Genetic Info Non-Discrimination Act (GINA) #gyncsm https://t.co/clz8wijggj |
| Dee Sparacio @womenofteal This is important >> |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @btrfly12 @FacingOurRisk Agreed. Concerns about #genetictesting , health insurance, life insurance, and other policy types are common. Check out this guide on protections and exceptions of the Genetic Info Non-Discrimination Act (GINA) #gyncsm https://t.co/clz8wijggj |
| IamCervivor @IamCervivor RT @btrfly12: Definitely a lot goes into the decision to get tested before or after diagnosis. That's where genetic counselors can be so valuable. There are also wonderful groups like @FacingOurRisk that can help you think through the legal/insurance/etc. issues and beyond. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA RT @temkins: @MegFarmerCGCMBA @gyncsm Or for patients with endometrial cancer who have abnormal MMR (mismatch repair genes) - genetic testing for Lynch syndrome may be recommended. #gyncsm. |
| IamCervivor @IamCervivor RT @MegFarmerCGCMBA: @btrfly12 @FacingOurRisk Agreed. Concerns about #genetictesting , health insurance, life insurance, and other policy types are common. Check out this guide on protections and exceptions of the Genetic Info Non-Discrimination Act (GINA) #gyncsm https://t.co/clz8wijggj |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @btrfly12 @FacingOurRisk Agreed. Concerns about #genetictesting , health insurance, life insurance, and other policy types are common. Check out this guide on protections and exceptions of the Genetic Info Non-Discrimination Act (GINA) #gyncsm https://t.co/clz8wijggj |
| Georgia @_GeorgiaHurst RT @MegFarmerCGCMBA: @gyncsm T5: @gyncsm T5: (Last…) Genetic (germline) testing can be helpful for those without cancer too if hereditary cancer is suspected in a family. If a mutation is identified, individualized plans can be made for early cancer detection, cancer risk reduction, and family planning. #gyncsm |
| Christina Lizaso @btrfly12 I think the importance of genetic testing after diagnosis is growing and growing - especially with newer treatments like immunotherapy. But all treatments are getting more targeted so knowing the genetic and genomic test results can be key to improved outcomes #gyncsm |
| Georgia @_GeorgiaHurst RT @btrfly12: I think the importance of genetic testing after diagnosis is growing and growing - especially with newer treatments like immunotherapy. But all treatments are getting more targeted so knowing the genetic and genomic test results can be key to improved outcomes #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Already time for closing thoughts! We use the last few minutes of the chat to wrap up and share what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for Today I Learned. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Already time for closing thoughts! We use the last few minutes of the chat to wrap up and share what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for Today I Learned. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm A huge thank you to @MegFarmerCGCMBA for spending time with us and sharing great information on the basics of Genetic Testing and Gyn Cancers #gyncsm |
| Dee Sparacio @womenofteal TIL of the importance of genetic testing for gyn cancers including those for cervical /endometrial and other rare gyn cancers. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @gyncsm TIL: The #gyncsm community is even more impressive and engaged than I realized! Thank you all for your great questions and for sharing your stories. https://t.co/ehCgVMJJoZ |
| Dee Sparacio @womenofteal So appreciate the valuable information you shared with us tonight. @MegFarmerCGCMBA #gyncsm |
 | DaveisAliveAndKickn @AliveAndKicknDD RT @MegFarmerCGCMBA: @gyncsm T3b (Last…) If you’re concerned about hereditary cancer risk based on this or other personal/family cancer history, a #GeneticCounselor can help determine whether genetic testing is appropriate, best person in family to test, and best test. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Don't forget - you have till Sept 22 to fill in our #gyncsm community survey. Help us as we plan out 2022 and beyond. https://t.co/mOgcCeZ9dZ |
| DaveisAliveAndKickn @AliveAndKicknDD RT @MegFarmerCGCMBA: @gyncsm T2b: @gyncsm T2b: To start, mutations in multiple genes are linked with hereditary endometrial/uterine cancer. Mutations in #Lynchsyndrome genes (MLH1, MSH2, MSH6, PMS2, EPCAM) account for the most cases of hereditary endometrial cancer. Risk varies significantly by gene. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA RT @gyncsm: Already time for closing thoughts! We use the last few minutes of the chat to wrap up and share what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for Today I Learned. #gyncsm |
| Dee Sparacio @womenofteal This link to the community survey will be open til Sept 22 https://t.co/00xOntpZ0R Please take some time to fill it out. Thanks! #gyncsm https://t.co/Jr90OOclrv |
| Georgia @_GeorgiaHurst Great chat, #gyncsm and @MegFarmerCGCMBA! Thank you for such an informative chat, good night! |
| Georgia @_GeorgiaHurst RT @womenofteal: So appreciate the valuable information you shared with us tonight. @MegFarmerCGCMBA #gyncsm |
| Dee Sparacio @womenofteal @_GeorgiaHurst @MegFarmerCGCMBA Thanks for joining us! #gyncsm |
| Christina Lizaso @btrfly12 TIL: Every time we revisit this topic, more genetic/genomic mutations have been identified and more treatment options based on targeting are available. Science is slow but also wonderful. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA RT @btrfly12: TIL: TIL: Every time we revisit this topic, more genetic/genomic mutations have been identified and more treatment options based on targeting are available. Science is slow but also wonderful. #gyncsm |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte on this our 8th Anniversary! https://t.co/rmKu04RDSB |
| Christina Lizaso @btrfly12 RT @CancerHopeNet: September is #GynecologicCancer Awareness Month. Our #survivor and #caregiver volunteers are here to help. #gyncsm Request a #freeandconfidential match today: https://t.co/SkpHiBA7hl https://t.co/Kun8TBTe9b |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Note there will be no #gyncsm chat in October. Save the date for our next chat Wed, November 10, 2021 at 8pmET when we’ll discuss “Talking to Family and Friends about Cancer and Cancer Risk”. |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats and spread awareness for Ovarian Cancer and Gyn Cancer Awareness months. |
| GYN Cancer | #GYNCSM @gyncsm Thanks so much to all who joined along and shared. You make this a great community. #gyncsm |
| Dee Sparacio @womenofteal A special shout out to my #gyncsm partner for 8 years . @btrfly12 . Thank you for making this possible. Your skills at writing questions and making this chat flow seamlessly is amazing! |
| Dee Sparacio @womenofteal RT @gyncsm: Note there will be no #gyncsm chat in October. Save the date for our next chat Wed, November 10, 2021 at 8pmET when we’ll discuss “Talking to Family and Friends about Cancer and Cancer Risk”. |
| Christina Lizaso @btrfly12 @elizakcourtney @MegFarmerCGCMBA @gyncsm I think the more "plain language" the better! Test yourself and test your tumor. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin @Miultimanota1 Great question! Typically we do not see the Germaine “VUS” in the tissue. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats and spread awareness for Ovarian Cancer and Gyn Cancer Awareness months. |
| Meg Farmer @MegFarmerCGCMBA @elizakcourtney @gyncsm Good question. I hear some people don’t like “tumor testing” because it wouldn’t apply as well to hematologic malignancies, etc. But I see what you mean in terms of it potentially getting someone to think broader. #gyncsm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @womenofteal: Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte on this our 8th Anniversary! https://t.co/rmKu04RDSB |
| Christina Lizaso @btrfly12 @womenofteal I love, love our partnership and how our skill-sets just fit together so well. Thanks for all you do Dee - it is a lot! #gyncsm |
 | NCI Cancer Stats @NCICancerStats #VulvarCancer has a 5-yr relative survival rate of 71.1%. This means that out of every 100 people w this cancer, ~71 will not have died of their cancer 5 yrs after diagnosis (excluding risk of dying from other causes). Learn more about this cancer: https://t.co/75ThX2FKfh #GynCSM https://t.co/QQyzW2cini |
| Meg Farmer @MegFarmerCGCMBA @Miultimanota1 @ShannonWestin Good question. If someone has germline (hereditary testing) on a blood or saliva sample and a variant of uncertain significance (VUS) is detected, it is usually in the whole body. However, we still need more info on what that genetic variant/difference means. #gyncsm |
| Meg Farmer @MegFarmerCGCMBA @Miultimanota1 @ShannonWestin (Cont…) A VUS is kind of like an inconclusive test result. There is not enough info available about that genetic difference (variant) to know if it is harmless and just makes that person unique or is harmful and linked with increased risk of a health problem. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm For more information on genetics and other #gyncsm topics, visit the Resources https://t.co/VyXkdaQU8h and Chat Topics https://t.co/wiuBkTp49E page on our blog. |
| Christina Lizaso @btrfly12 RT @gyncsm: For more information on genetics and other #gyncsm topics, visit the Resources https://t.co/VyXkdaQU8h and Chat Topics https://t.co/wiuBkTp49E page on our blog. |
| Georgia @_GeorgiaHurst RT @AmandaBinDC: This Breast Cancer Gene Is Less Well Known, but Nearly as Dangerous https://t.co/D3G6lShTLS #gencsm #bcsm #gyncsm #hereditarycancer |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @Miultimanota1 @ShannonWestin Good question. If someone has germline (hereditary testing) on a blood or saliva sample and a variant of uncertain significance (VUS) is detected, it is usually in the whole body. However, we still need more info on what that genetic variant/difference means. #gyncsm |
| Dee Sparacio @womenofteal RT @MegFarmerCGCMBA: @Miultimanota1 @ShannonWestin (Cont…) A VUS is kind of like an inconclusive test result. There is not enough info available about that genetic difference (variant) to know if it is harmless and just makes that person unique or is harmful and linked with increased risk of a health problem. #gyncsm |
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