#HCLDR Transcript
Healthcare social media transcript of the #HCLDR hashtag.
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See #HCLDR Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | HCLDR Moderator @hcldr Hello and welcome everyone to the weekly Healthcare Leadership Tweet Chat #hcldr |
| HCLDR Moderator @hcldr Behind this blue box is @JoeBabaian โ your #hcldr chat moderator tonight calling in from Houston. |
 | Colin Hung @Colin_Hung @GraceCordovano Discovered about 40min from where I'm tweeting tonight #hcldr |
 | Enlightening Results ๐ก @GraceCordovano @TextraHealth @JoeBabaian @pfanderson @SusannahFox @RBlount @nickisnpdx @mikebiselli @TomVargheseJr @jhoronjeff @choo_ek @jamcbride @garyleethompson @andrewintech This is what resonated with me too Megan. #hcldr |
| Enlightening Results ๐ก @GraceCordovano RT @TextraHealth: @JoeBabaian @pfanderson @SusannahFox @RBlount @nickisnpdx @mikebiselli @TomVargheseJr @jhoronjeff @choo_ek @jamcbride @garyleethompson @andrewintech โCare is not defined by its absence, but by its presence.โ #hcldr https://t.co/XTVCM6sOUH |
 | Bob @RBlount RT @hcldr: Behind this blue box is @JoeBabaian โ your #hcldr chat moderator tonight calling in from Houston. |
 | Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @DavisJamie77: Can I just say I'm amped for tonight's #hcldr chat? After fighting over $3k/month cancer meds for my dad, I'm so in this fight. I'm moved - you should be, too: https://t.co/S11Y8aE4Fb |
| Colin Hung @Colin_Hung @susanwoolner Hello Susan. Great to see you #hcldr |
| HCLDR Moderator @hcldr Tonight Colin will my amazing wingman @colin_hung #hcldr |
| HCLDR Moderator @hcldr For the next hour weโll be discussing: $50 To Live, $50 to Die. #hcldr blog has more - https://t.co/Fu9pYwhehY https://t.co/eIPEChO4ni |
 | Jamie Roger @JamieRoger8 so glad to be part of the #hcldr chat tonight. This is Jamie, from CT representing @SalemOaks Can't wait to engage with all of you tonight! #TuesdayNightFever |
 | รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 This is the #Whisky Librarian dipping in for #hcldr with "Writer Tears" in Hand Light, sweet Irish whiskey made using a mix of single pot still and single malt whiskeys, resulting in oodles of honey'd, fruity notes #Tonightstipple https://t.co/W1tfkmLy6B |
 | Joe Babaian ๐บ๐ฆ @JoeBabaian Food for thought. Wanted Shkreli to visit tonight, but he's in PRISON. #hcldr https://t.co/eVmz3lAPfk |
 | Mariah Obiedzinski @MariahWrites Mariah from @MedTouch here! #content #HCLDR #justkeepsmiling |
 | Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Chuck! #hcldr https://t.co/VcSzCVauVx |
 | Susan Woolner, CPXP @susanwoolner RT @susanwoolner: Checking in to #hcldr chat. Susan neurosciences patient and caregiver community manager in Michigan |
| Colin Hung @Colin_Hung @JamieRoger8 @SalemOaks Hello Jamie. Welcome to the chat tonight. Thanks for being here. #hcldr |
| Enlightening Results ๐ก @GraceCordovano Good evening #hcldr! Grace, private cancer patient advocate & #PtExp enhancer, joining from NJ. Heartbroken & infuriated reading $50 to Die. Must chip away at this! |
 | Sally James @jamesian Hi - waving from #seattle. Journalist and reviewer of health news for @HealthNewsRevu #hcldr |
 | Heather McCullen @H_SalemOaks Hi #hcldr, checking in from Ann Arbor(-ish). Super excited for tonights topic! |
| HCLDR Moderator @hcldr Letโs start off with some introductions! #hcldr |
| HCLDR Moderator @hcldr For those new to #hcldr - every week we gather at 8:30pm ET to discuss interesting & relevant healthcare topics |
| Colin Hung @Colin_Hung @MariahWrites @MedTouch Hello Mariah! Will you be in SLC for #HMPS18 next week? #hcldr |
| Enlightening Results ๐ก @GraceCordovano @MariahWrites @MedTouch Great to see yo Mariah #hcldr |
| Mariah Obiedzinski @MariahWrites RT @GraceCordovano: Good evening #hcldr! Grace, private cancer patient advocate & #PtExp enhancer, joining from NJ. Heartbroken & infuriated reading $50 to Die. Must chip away at this! |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @drnic1 Nick, that's a winning choice! c @BrowofJustice @RBlount @nickisnpdx @MsWZ @ProfAmyE @MarkMilliganDPT #hcldr |
| Mariah Obiedzinski @MariahWrites RT @jamesian: Hi - waving from #seattle. Journalist and reviewer of health news for @HealthNewsRevu #hcldr |
| Colin Hung @Colin_Hung @drnic1 Hello Nick. Great to see you my friend. Always appreciate your insights #hcldr |
| Susan Woolner, CPXP @susanwoolner @JoeBabaian He also only likes to use a video cam and that's just plain creepy! #hcldr |
| Bob @RBlount RT @hcldr: For the next hour weโll be discussing: For the next hour weโll be discussing: $50 To Live, $50 to Die. #hcldr blog has more - https://t.co/Fu9pYwhehY https://t.co/eIPEChO4ni |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @GraceCordovano @MariahWrites @MedTouch Hello Grace and Mariah! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @H_SalemOaks Hi Heather! #hcldr |
 | Jamie Martin @DavisJamie77 Health IT passionate marketer & patient advocate diving in tonight from south Louisiana! Hello, all! #hcldr |
 | Inspire @InspireIsHealth Hello, #hcldr, John Novack checking in from Inspire. |
 | ElizabethKelly, Ph.D @Elizabe85727641 Hello everyone, Liz Kelly, eager to learn from/with others on this timely & costly HC issue. Another elephant to address. #hcldr |
 | Amanda G @LAlupusLady Amanda from LA lurking tonight #hcldr |
 | Mark Milligan @MarkMilliganDPT Hey @JoeBabaian and @Colin_Hung Incredibly important topic tonight! Mark Milligan, physical therapist in Austin TX here! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @JamieRoger8 @SalemOaks Jamie, welcome, thanks for coming tonight! #hcldr |
 | Chelsea Friend @kiwifreund Chelsea from #StPaul, #Minnesota. #RareDisease patient, always on the verge of ____. #hcldr |
| HCLDR Moderator @hcldr We usually have 4 topics/questions that we discuss together as a community. #hcldr |
| HCLDR Moderator @hcldr The #hcldr chat lasts 1hr and is designed to educate and promote professional development in healthcare. |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @susanwoolner Hi Susan! Welcome! #hcldr |
| Mark Milligan @MarkMilliganDPT @GraceCordovano Hey Grace! #HCLDR |
| Colin Hung @Colin_Hung @H_SalemOaks Hello Heather. Appreciate you being on the chat tonight. We love our MI friends @StorkBrian @BFMack @pfanderson so many others! #hcldr |
| Enlightening Results ๐ก @GraceCordovano @JoeBabaian HI Joe! Sadly, he's still fairing better than so many desparately trying to make ends meet. #pricegouging #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @susanwoolner Do more than check in, jump in! :) #hcldr |
| Sally James @jamesian @GraceCordovano @MariahWrites @MedTouch Nice to see you, Grace. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @MarkMilliganDPT: Hey @JoeBabaian and @Colin_Hung Incredibly important topic tonight! Mark Milligan, physical therapist in Austin TX here! #hcldr |
| Amanda G @LAlupusLady RT @JoeBabaian: $50 to live. Everyone in the #pinksocks & #hcldr communities needs to read this now. It's not comfortable nor is it easy. It's not a meme. It's real & folks like us can stop this, I know we can. HT @pfanderson @SusannahFox #SDoH โ๏ธ Story: https://t.co/98zGFPiHz4 https://t.co/nX1cKIIekN |
| Colin Hung @Colin_Hung @MarkMilliganDPT @JoeBabaian Hello Mark. Thanks for joining the conversation! So nice to see you #hcldr |
 | HealthSparq @HealthSparq Such an important chat tonight on #HCLDR - join in if you can! #patientchat #patientsincluded #HITsm #WTFix #PWchat #PatientsHavePower https://t.co/xJ7xjytTwj |
| Susan Woolner, CPXP @susanwoolner RT @PatientOrator: I think #healthcare should be more affordable, It should be more attainable for #veterans also" L'zerek #PatientOrator #ThoughtsOnUsHealthcareSystem #civicengagement #PopHealth #SDOH #SDOHEPC #s4pm #hcldr #Baltimore #Maryland https://t.co/Y3XutPcpJc |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MarkMilliganDPT @Colin_Hung Hi Mark! #hcldr |
| Enlightening Results ๐ก @GraceCordovano @jamesian @MariahWrites @MedTouch Hi Sally! #hcldr |
| Mariah Obiedzinski @MariahWrites @Colin_Hung @MedTouch Attention, @paul_griffiths ... โซโซ #testing #isthisthingon #hcldr |
 | Mariam Jacob @MariamSJacob Hello from Houston! Looking forward to tonight's chat! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MTL613 Welcome! #hcldr |
| Sally James @jamesian @H_SalemOaks Nice to see you Heather. Sounds as if you know more than most of us about this. #hcldr #caregiver |
| Enlightening Results ๐ก @GraceCordovano @MarkMilliganDPT Nice to see you Mark #hcldr |
| HCLDR Moderator @hcldr While intros continue, Iโll go over some #hcldr tweetchat guidelines. |
| HCLDR Moderator @hcldr You can read more about each weekโs topic on the #hcldr blog https://t.co/Zgftfgc7HC |
 | Laura Appel @lauradianeappel Laura from East Lansing. Idea person and #healthpolicy wonk checking into #hcldr and reading the blog just now. #procrastination |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MariamSJacob Hello my local friend! #hcldr |
| Mariah Obiedzinski @MariahWrites @GraceCordovano @MedTouch Likewise! #hcldr |
| Colin Hung @Colin_Hung @kiwifreund Hello Chelsea! So nice to see you. Looking fw to your perspective tonight. #RareDisease adds a whole new dimension to drug availability & pricing #hcldr |
| Enlightening Results ๐ก @GraceCordovano Hey @Colin_Hung! #hcldr |
 | Bonnie C. Sheeren, BCPA @bonniesheeren Hello! Bonnie Sheeren one of the chapter leaders of the Houston Right Care Alliance. I invite everyone to join their local Right Care Alliance! https://t.co/gxwh03HOHD #hcldr #RightCareNow #TXRightCare |
 | James A. Gardner @jamesagardner Checking in to #hcldr chat. Watching and listening โบ๏ธ |
| Heather McCullen @H_SalemOaks @Colin_Hung @StorkBrian @BFMack @pfanderson Fun fact: if you tell someone you live in Michigan they will name at least 2 people who live near you. #hcldr |
| Colin Hung @Colin_Hung @natarpr Hello Prashant! Hope you are doing well my friend. Great to see you and great to see you hook on with another company #hcldr |
| Susan Woolner, CPXP @susanwoolner Back after a long semester coming to an end. I can see the closed books now! Good to be here Colin #hcldr https://t.co/v7AqzEY8Um |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @bonniesheeren Hello Bonnie! Welcome! #hcldr #insulin4all |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba Good evening everyone. I'm Shereese, HC strategist from Maryland's Eastern Shore. Prepping for #HDpalooza; stopped to participate in this evening's most promising convos. #hcldr https://t.co/i8HZOiqbO1 |
| Mark Milligan @MarkMilliganDPT @drnic1 Nick! We need to have a #HCLDR #whiskey party. Talk about solve the worlds problems... |
| Enlightening Results ๐ก @GraceCordovano @lauradianeappel It's a read not to be missed! #hcldr |
| Jamie Roger @JamieRoger8 @QuinlanTurner @hcldr I always struggle with that too, trying to get more #creative #icebreakers were always start out #awkward #hcldr |
| Colin Hung @Colin_Hung @HealthSparq Thanks for the tweet! #hcldr |
| HCLDR Moderator @hcldr We assume all tweets during #hcldr are your own & not those of your employer (unless specifically expressed) |
| HCLDR Moderator @hcldr We have 4 questions tonight labeled T1, T2, T3, & T4. Watch this blue circle to know which question we are on #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @hcldr: We have 4 questions tonight labeled T1, T2, T3, & T4. Watch this blue circle to know which question we are on #hcldr |
| Enlightening Results ๐ก @GraceCordovano @HealthSparq Howdy!! Great to see you guys (Anna or Burt?) #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @H_SalemOaks @Colin_Hung @StorkBrian @BFMack @pfanderson LOL #hcldr |
| Susan Woolner, CPXP @susanwoolner Thank you Joe - Glad to be here. Great topic tonight. Couldn't miss it #hcldr https://t.co/uIuvkFmKbp |
 | PF Anderson @pfanderson@disabled.social @pfanderson @H_SalemOaks @Colin_Hung @StorkBrian @BFMack Unless they are a recluse like me ....... (or maybe I do this and haven't noticed) #hcldr |
| Colin Hung @Colin_Hung @MariamSJacob Hello Mariam. So nice to see our friends from Houston! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @natarpr My friend! High five! #hcldr |
| HealthSparq @HealthSparq @annerskg here on a gorgeous evening in #PDX (storm troopers for emphasis) for @HealthSparq, couldn't miss such an important topic as a #WTFix'er! #hcldr https://t.co/qdvIN6YGjk |
| Mark Milligan @MarkMilliganDPT @ShereesePubHlth Hey Shereese! #HCLDR |
| Enlightening Results ๐ก @GraceCordovano @natarpr Long time no see Prashant! Great to see you. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren May 12th (Mother's Day weekend) will be a @RightCareNow action day to bring attention to this! #hcldr #RightCareNow #TXRightCare #insulin4all |
 | Bingle @TheBingle Hello all... Bingle joining in from NY... Putting my $50 on.... Oops... Forgot my money..... Guess that means..... #hcldr |
| HCLDR Moderator @hcldr Please label your answers with the appropriate T1, T2, T3, or T4 label. This will make our transcript easier to read #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson Swimming in and out of #hcldr because my son is recovering from more dental work, poor kid. And the pooch wants a walk. Meh. Be back soon! |
| Enlightening Results ๐ก @GraceCordovano @Elizabe85727641 Hi Liz! What a heartbreaking story. One of too many out there #hcldr |
| Colin Hung @Colin_Hung @lauradianeappel Hello Laura. Another MI friend! @H_SalemOaks So many are here tonight ! #hcldr |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @H_SalemOaks @Colin_Hung @StorkBrian @BFMack @pfanderson @MI_turnaround @jslentzclifton? #hcldr https://t.co/Il3wBH8RLL |
| Chelsea Friend @kiwifreund @Colin_Hung You know it! #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @MarkMilliganDPT How are you? #hcldr https://t.co/esGg2ietEa |
| Enlightening Results ๐ก @GraceCordovano @teaminspire Great to see you John! Hope all is well. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @RBlount @drnic1 Bob, you are so welcome. It's all about being together even when we are apart - friendship. #hcldr |
| Colin Hung @Colin_Hung @bonniesheeren Hello Bonnie! #hcldr |
| Mariah Obiedzinski @MariahWrites @MTL613 Welcome! #hcldr |
| Mark Milligan @MarkMilliganDPT @Colin_Hung @JoeBabaian Thank you, Colin! Great topic! Great to be hear! #HCLDR |
| Colin Hung @Colin_Hung @bbhomebody @Cpnervecenter Hello Becky. Thanks for being here tonight #hcldr Appreciate your time. |
| Susan Woolner, CPXP @susanwoolner My absolute favorite quote of the whole heartbreaking piece as it speaks to what I have tried to build in the neuro community in West Michigan. #hcldr https://t.co/nAmxYmi2n6 |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @pfanderson Take good care Patricia! Thanks for being here best you can! #hcldr |
| HCLDR Moderator @hcldr We have a lot of remarkable folks on tonight & lots of ideas will be shared โ please try to stay on topic. #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @hcldr: We have a lot of remarkable folks on tonight & lots of ideas will be shared โ please try to stay on topic. #hcldr |
| Colin Hung @Colin_Hung @jamesagardner Hello James! Can't wait to see you next week at #HMP18 Twice in 4 weeks. Awesome! #hcldr |
 | Sarah Greene @researchmatters #hcldr hi from Seattle, but Iโm actually in the other Washington. Not invited to State dinner, would much prefer to hang with yโall regardless! |
 | Nathan Grunewald MD MBA FACS @NathanGrunewald These are going to be some tough questions tonight. Healthcare access, rights, intersection with capitalism. Fasten ur seatbelts! #hcldr |
 | burtrosen ๐ฆ @burtrosen hey all, burt from @HealthSparq here in beautiful Buffalo NY and on my way to Detroit, i get all the cool trips! #HCLDR |
| Colin Hung @Colin_Hung @ShereesePubHlth Hello Shereese!!! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @bbhomebody @Cpnervecenter Welcome Becky! Great to see you! #hcldr |
 | ๐ฌJen Horonjeff | #askpatients @jhoronjeff Hey friends! Gotta sit this one out tonight. Husband made me some delicious pre-birthday yummies before I head out for my next travel marathon. But super important topic. I trust you will put your best thoughts forward! โค๏ธโค๏ธโค๏ธ#hcldr |
| Jamie Martin @DavisJamie77 RT @susanwoolner: My absolute favorite quote of the whole heartbreaking piece as it speaks to what I have tried to build in the neuro community in West Michigan. #hcldr https://t.co/nAmxYmi2n6 |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @TheBingle Welcome Bingle :) #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MariamSJacob It WILL happen! #hcldr |
| Sally James @jamesian @MTL613 Hi Michael. Welcome. Good to have fresh faces here. Do you use a CGM? #hcldr (Asking because @danamlewis is here in #seattle, the #weareotwaiting king. ) |
| Mark Milligan @MarkMilliganDPT @ShereesePubHlth Rocking and rolling this way!! #HCLDR #MYFAVORITEGIF!!! https://t.co/h8c1LJ4pC5 |
| Susan Woolner, CPXP @susanwoolner Hi Laura - great to see you tonight #hcldr https://t.co/9WhV3NribM |
| Colin Hung @Colin_Hung @drlfarrell Hello Liam! So nice to have your comments on #hcldr Appreciate that you stay up late for us |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 T1 Take a deep dive into cost comparisons in this excllent interactive @tableau data set to see the disparity between the US and the Rest of the world #diabetes #hcldr https://t.co/KOUpdPsTL0 https://t.co/O21jwu1dyL |
| Chelsea Friend @kiwifreund @H_SalemOaks @Colin_Hung @StorkBrian @BFMack @pfanderson Mackinac Island, anyone?? ๐ 3-year veteran. #hcldr |
 | Kayoko โKyโ Corbet, RN, BCPA @kkcorbet Good evening everyone!Great to be checking back in #hcldr after a long break! Iโm Kayoko, in Maryland, a patient advocate at micro (private practice) as well as macro (activist) level! |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @JoeBabaian: Food for thought. Wanted Shkreli to visit tonight, but he's in PRISON. #hcldr https://t.co/eVmz3lAPfk |
| Heather McCullen @H_SalemOaks @burtrosen @HealthSparq My favorite intersection of topics! #hcldr (this doesn't mean I'll be any better at keeping up with the pace than usual) |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @JoeBabaian: $50 to live. Everyone in the #pinksocks & #hcldr communities needs to read this now. It's not comfortable nor is it easy. It's not a meme. It's real & folks like us can stop this, I know we can. HT @pfanderson @SusannahFox #SDoH โ๏ธ Story: https://t.co/98zGFPiHz4 https://t.co/nX1cKIIekN |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @drnic1: T1 Take a deep dive into cost comparisons in this excllent interactive @tableau data set to see the disparity between the US and the Rest of the world #diabetes #hcldr https://t.co/KOUpdPsTL0 https://t.co/O21jwu1dyL |
| Colin Hung @Colin_Hung @TheBingle Hello! So great to see you. #hcldr |
| Enlightening Results ๐ก @GraceCordovano @jhoronjeff Glad you could peek in! Enjoy! Catch up soon. #hcldr |
| Heather McCullen @H_SalemOaks @NathanGrunewald My favorite intersection of topics! #hcldr (this doesn't mean I'll be any better at keeping up with the pace than usual) |
| Colin Hung @Colin_Hung RT @drnic1: T1 Take a deep dive into cost comparisons in this excllent interactive @tableau data set to see the disparity between the US and the Rest of the world #diabetes #hcldr https://t.co/KOUpdPsTL0 https://t.co/O21jwu1dyL |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @Colin_Hung Always nice to see you Colin. #hcldr https://t.co/4XcqyVL3HI |
| HCLDR Moderator @hcldr Letโs get ready for T1 in just 1 minute #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 T1 Insulin discovered 1921 by Canadian (yes @ColingHung) physician Frederick Banting & Med Student Charles Best & been under patent protection for 95 years! Small changes been deemed patentable preventing generic options from being offered #hcldr https://t.co/PHFwMOxqWK |
| Bingle @TheBingle @JoeBabaian Glad to join in JB. Sad reality topic tonight. #hcldr |
| Colin Hung @Colin_Hung @teaminspire Hello John! #hcldr |
 | Erin Moriarty Wade @EMoriartyWade RT @HealthSparq: Such an important chat tonight on #HCLDR - join in if you can! #patientchat #patientsincluded #HITsm #WTFix #PWchat #PatientsHavePower https://t.co/xJ7xjytTwj |
| Susan Woolner, CPXP @susanwoolner Absolute truth Heather and they will also point to their right hand to show you were they live in relationship to where you live. Crazy funny! #hcldr https://t.co/s6uTywWuMQ |
| Heather McCullen @H_SalemOaks @burtrosen @HealthSparq HEY! Buffalo and Detroit are lovely(-ish) #hcldr |
| Enlightening Results ๐ก @GraceCordovano @burtrosen @HealthSparq Seriously, your OOTO message was hysterical. Hope Buffalo is warm (wait never mind) #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @drlfarrell And we have Liam. The kind of doc I wish I always had ... or not? :) #hcldr Great to see you my friend - and I mean that not as the American calling everyone friend. Real friend. :) |
| Mariah Obiedzinski @MariahWrites @ShereesePubHlth Hi there! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @drlfarrell: |
| Bonnie C. Sheeren, BCPA @bonniesheeren RT @drnic1: T1 Take a deep dive into cost comparisons in this excllent interactive @tableau data set to see the disparity between the US and the Rest of the world #diabetes #hcldr https://t.co/KOUpdPsTL0 https://t.co/O21jwu1dyL |
| Colin Hung @Colin_Hung @researchmatters Hello Sarah. We're glad you're here. State Dinners are overrated...so I hear #hcldr :) |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @EMRAnswers @Colin_Hung Linda! HUGS. Thanks for being you, being here, being a true friend. #hcldr |
| HCLDR Moderator @hcldr Time for T1: How should access to a drug that is necessary for life for ~1.5M Americans, such as insulin, be handled? What can we learn from other nations on this? #hcldr https://t.co/8OvgEnHOt4 |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 @MarkMilliganDPT You mean a #whisky party :-) Iโm in! #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 T1 Oh and BTW: Insulin's Canadian discoverers sold the patent to their university for $1, stating that profit was not their goal #hcldr https://t.co/tmhgt1UhBx |
| Mariah Obiedzinski @MariahWrites RT @hcldr: Letโs get ready for T1 in just 1 minute #hcldr |
| Colin Hung @Colin_Hung @NathanGrunewald Tough questions = good conversation #hcldr |
| Susan Woolner, CPXP @susanwoolner @ShereesePubHlth Hi Shereese! Great to see you tonight #hcldr |
| Bingle @TheBingle @Colin_Hung Always great to join with you and all great people in #hcldr |
| Sally James @jamesian T1 #hcldr Great graphic from #insulin4all https://t.co/2DDyjavBvm |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MariahWrites @ShereesePubHlth Hi Shereese and Mariah :) #hcldr |
| Enlightening Results ๐ก @GraceCordovano #hcldr #insulin4all https://t.co/TWCPDYcJZh |
| Colin Hung @Colin_Hung @EMRAnswers @JoeBabaian Hello Linda!!! So great to see you #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @drnic1 @MarkMilliganDPT In and done. #hcldr Crash at Bob's :) c @RBlount |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @GraceCordovano: #hcldr #insulin4all https://t.co/TWCPDYcJZh |
| Heather McCullen @H_SalemOaks @MTL613 #dsma is so much more relaxing. I always need to go right to bed after #hcldr and #htreads |
| Jamie Roger @JamieRoger8 @QuinlanTurner @hcldr Maybe someday we will have more #interesting #openers haha, I guess we just have to keep participating in #tweetchats so we have to #practice #hcldr |
| Sally James @jamesian @MTL613 @danamlewis Cool. ๐ค๐ค #hcldr At least, hypothetically, it seems like you are not waiting and I applaud. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @drnic1: T1 Insulin discovered 1921 by Canadian (yes @ColingHung) physician Frederick Banting & Med Student Charles Best & been under patent protection for 95 years! Small changes been deemed patentable preventing generic options from being offered #hcldr https://t.co/PHFwMOxqWK |
| HealthSparq @HealthSparq RT @hcldr: Time for T1: Time for T1: How should access to a drug that is necessary for life for ~1.5M Americans, such as insulin, be handled? What can we learn from other nations on this? #hcldr https://t.co/8OvgEnHOt4 |
| Colin Hung @Colin_Hung @burtrosen @HealthSparq You're like down the highway from me Burt! At least you're having good weather. Say hi to our MI friends! #hcldr |
| Mariah Obiedzinski @MariahWrites RT @hcldr: Time for T1: Time for T1: How should access to a drug that is necessary for life for ~1.5M Americans, such as insulin, be handled? What can we learn from other nations on this? #hcldr https://t.co/8OvgEnHOt4 |
| Mark Milligan @MarkMilliganDPT @drnic1 HAHA! I am Scot/Irish so I can spell delicious either way! #HCLDR |
| Laura Appel @lauradianeappel @susanwoolner Susanโstill need to track you down. Doing some work on #Medicaid work requirements these days. #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba .@MariahWrites @GraceCordovano @bbhomebody @DavisJamie77 @susanwoolner #hcldr https://t.co/qx7hW1ucEj |
| Susan Woolner, CPXP @susanwoolner You and I always discover we were within the same theater or location on campus but only after the fact. #hcldr https://t.co/76XhNVzjvY |
| Enlightening Results ๐ก @GraceCordovano @drnic1 @SGottliebFDA, hoping you have plans to tackle this situation! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @burtrosen @HealthSparq Hi Burt! Counting down the days to #WTFix - Seems like it is going to be AWESOME! #hcldr |
 | Dr. Victoria Dooley @DrDooleyMD RT @drnic1: T1 Take a deep dive into cost comparisons in this excllent interactive @tableau data set to see the disparity between the US and the Rest of the world #diabetes #hcldr https://t.co/KOUpdPsTL0 https://t.co/O21jwu1dyL |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet Thanks so much for choosing this critical topic tonight! #insulin4all #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @burtrosen: hey all, burt from @HealthSparq here in beautiful Buffalo NY and on my way to Detroit, i get all the cool trips! #HCLDR |
| Colin Hung @Colin_Hung @jhoronjeff Happy Birthday Jen. Relax you deserve it. You've been on the road A LOT. Take care. See you soon #hcldr |
| Bob @RBlount RT @Colin_Hung: @NathanGrunewald Tough questions = good conversation #hcldr |
| Bingle @TheBingle Guess things have changed..... Time was when Salk said vaccine belongs to the people also..... #hcldr https://t.co/KH5MIaXcop |
| Bonnie C. Sheeren, BCPA @bonniesheeren RT @jamesian: T1 #hcldr Great graphic from #insulin4all https://t.co/2DDyjavBvm |
| Colin Hung @Colin_Hung @mattbmartin Hello Matt. Welcome to the chat #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @NathanGrunewald: These are going to be some tough questions tonight. Healthcare access, rights, intersection with capitalism. Fasten ur seatbelts! #hcldr |
| Enlightening Results ๐ก @GraceCordovano @drlfarrell @Colin_Hung Hello #irishmed friend! Great to see you tonight! #hcldr |
| Mariah Obiedzinski @MariahWrites T1: Attempting to be civil about this topic. No promises! We make sure kids get food. How the hell can anyone think it's ok to not give them lifesaving #insulin? #hcldr |
| Colin Hung @Colin_Hung @drnic1 Though I'm sure they asked for the early ice time for hockey - it's the Canadian thing to do. ;) #hcldr |
| Susan Woolner, CPXP @susanwoolner This is a swamp as you well know. I cannot believe that passed. As a parent of two boys on medicaid with disabilities. One will have a work requirement and one will not. It is a cluster #hcldr https://t.co/sSIITuNg8o |
 | Laura Marston @Kidfears99 Hi #hcldr Iโm Laura and Iโve had Type 1 going on 22 years. Iโve used Humalog the entire time. Itโs remained unchanged, except the price has increased over 1200% since my diagnosis at age 14. #insulin4all |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @mattbmartin Thank you Matt. It resonated up from our community beginning with @pfanderson sharing it. I couldn't resist making it tonight's topic. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @mattbmartin: |
| Jamie Roger @JamieRoger8 T1 - if a medicine is #NECESSARY not just #recommended for an individual to #survive, #funding shouldn't even be part of the discussion. A world without #community and #availableresources is one where we are losing valuable human lives #hcldr |
| Enlightening Results ๐ก @GraceCordovano @misterchambo I can't wrap my head around this. Around almost a 100 years and no generic? Where did morals & ethics go? #hcldr |
| Laura Appel @lauradianeappel @GraceCordovano The graphic post is terrific. Reinvigorates the work around #Medicaid expansion and trying to rewrite the proposed work requirements. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @Kidfears99 Welcome Laura, TY for joining. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @Kidfears99: Hi #hcldr Iโm Laura and Iโve had Type 1 going on 22 years. Iโve used Humalog the entire time. Itโs remained unchanged, except the price has increased over 1200% since my diagnosis at age 14. #insulin4all |
 | Jeremy Coleman @jeremycoleman We should reduce barriers to the market to increase competition and drive down prices. #hcldr https://t.co/vbRnQqFb8G |
| Erin Moriarty Wade @EMoriartyWade @hcldr T1 Could we create a system to safely sell it over the counter (perhaps behind the pharmacy counter...with a required training or/and signature required like they do for cold medicines containing amphetamines)? #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @lollydaggle Hello Hannah! Thank you SO much for joining, welcome! #hcldr |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet @lollydaggle Hey Hannah So happy you made it tonight! (I just came on also :D) #hcldr |
| Sally James @jamesian @Kidfears99 She's not exaggerating. #hcldr https://t.co/sicxzN5YUL |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @MariahWrites: T1: T1: Attempting to be civil about this topic. No promises! We make sure kids get food. How the hell can anyone think it's ok to not give them lifesaving #insulin? #hcldr |
| Mark Milligan @MarkMilliganDPT @hcldr T1: Access to drugs that are necessary for life should be fair and equal for all. However, that's not how #access happens in the US. #HCLDR #SDoH |
| Colin Hung @Colin_Hung @MTL613 T1 That's the paradox. Those in most need of access usually are the ones that can't afford it. Those that can afford it, usually have lifestyles that don't make them as susceptible to certain conditions. Gotta break that cycle #hcldr |
| Enlightening Results ๐ก @GraceCordovano @ShereesePubHlth @MariahWrites @bbhomebody @DavisJamie77 @susanwoolner Great to see you all! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @Colin_Hung: @NathanGrunewald Tough questions = good conversation #hcldr |
| Chelsea Friend @kiwifreund T1: Insulin should be one of the most accessibly prolific medications available. It is not a luxury. #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba T1 As a society, we need to seriously revisit the Patient Access to Treatment Act. I had this convo earlier. If we exploit tools already in place, conversations will be spawned #hcldr |
| Bob @RBlount Itโs the kind of stuff that will make is all sick! #hcldr https://t.co/FmtRmhStxA |
| Dr. Victoria Dooley @DrDooleyMD RT @Kidfears99: Hi #hcldr Iโm Laura and Iโve had Type 1 going on 22 years. Iโve used Humalog the entire time. Itโs remained unchanged, except the price has increased over 1200% since my diagnosis at age 14. #insulin4all |
| ElizabethKelly, Ph.D @Elizabe85727641 T1 Develop & require negotiation strategies for all Rx between patients/insurance companies, businesses, public health settings, and state/national legislators. Measure via improved health status rather than continued illness. #hcldr |
| Mariah Obiedzinski @MariahWrites Preach. ๐ฝ๐ฝ #hcldr https://t.co/3PPuW7HNGC |
| HealthSparq @HealthSparq RT @jamesian: @Kidfears99 She's not exaggerating. #hcldr https://t.co/sicxzN5YUL |
| Susan Woolner, CPXP @susanwoolner It has to be different than it has been. There should be a class of drugs that are outside of those that prices can be raised and they should be available at very low cost of free with a prescription. #hcldr https://t.co/CgfjAU5q7p |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @jhoronjeff You'll be missed! Check your email tomorrow for some #hcldr planning stuff :) HUGS and Happy Birthday! |
| Susan Woolner, CPXP @susanwoolner RT @EMoriartyWade: @hcldr T1 Could we create a system to safely sell it over the counter (perhaps behind the pharmacy counter...with a required training or/and signature required like they do for cold medicines containing amphetamines)? #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @MarkMilliganDPT: @hcldr T1: @hcldr T1: Access to drugs that are necessary for life should be fair and equal for all. However, that's not how #access happens in the US. #HCLDR #SDoH |
| Nathan Grunewald MD MBA FACS @NathanGrunewald This is a lively bunch tonight! ๐ฟ๐ฅค ๐#hcldr |
| Jeremy Coleman @jeremycoleman T1 Why should we treat drugs, without regard to necessity, any different tha food or shelter? #hcldr |
| Mark Milligan @MarkMilliganDPT @JoeBabaian @drnic1 @RBlount Time to set a date!! #Whiskey #Whisky #HCLDR #ATX #SleepoveratBobs... |
| Mariah Obiedzinski @MariahWrites RT @Colin_Hung: @MTL613 T1 That's the paradox. Those in most need of access usually are the ones that can't afford it. Those that can afford it, usually have lifestyles that don't make them as susceptible to certain conditions. Gotta break that cycle #hcldr |
| Jamie Roger @JamieRoger8 @MarkMilliganDPT @hcldr agreed, and this is why we have the #debates and #disagreements over #healthcare. It's causing us to lose people that could otherwise live healthy lives #hcldr |
| HealthSparq @HealthSparq RT @drnic1: T1 Take a deep dive into cost comparisons in this excllent interactive @tableau data set to see the disparity between the US and the Rest of the world #diabetes #hcldr https://t.co/KOUpdPsTL0 https://t.co/O21jwu1dyL |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @susanwoolner Just one class? Or? #hcldr |
| Jamie Martin @DavisJamie77 RT @EMoriartyWade: @hcldr T1 Could we create a system to safely sell it over the counter (perhaps behind the pharmacy counter...with a required training or/and signature required like they do for cold medicines containing amphetamines)? #hcldr |
 | Lisa Davis Budzinski @lisadbudzinski Multi-tasking while trying to keep up with #hcldr https://t.co/OHqKOE7ejG |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @MarkMilliganDPT: @JoeBabaian @drnic1 @RBlount Time to set a date!! #Whiskey #Whisky #HCLDR #ATX #SleepoveratBobs... |
| Susan Woolner, CPXP @susanwoolner RT @JamieRoger8: @MarkMilliganDPT @hcldr agreed, and this is why we have the #debates and #disagreements over #healthcare. It's causing us to lose people that could otherwise live healthy lives #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @lisadbudzinski Welcome Lisa! #hcldr |
| Erin Moriarty Wade @EMoriartyWade @hcldr T1 Consider allowing import of manufactured insulin to boost supply in America...from what I can tell it looks like manufactured insulin is only made in US but I know plenty of life-saving drugs are imported. #hcldr |
| Colin Hung @Colin_Hung @MariahWrites T1 I wonder if it's just b/c the outrage level hasn't reach the point where action is taken. We didn't want to see children going to school hungry & we did something. Now it's time to do something for access to life-saving drugs/therapies #hcldr |
| Heather McCullen @H_SalemOaks @MelindaMWedding How do you balance the two? My husband has T1, and we recognize we're pretty privileged. Sometimes it's uncomfortable to get excited about new tech (even home made tech) when we know other people can't afford to literally stay alive. #hcldr |
 | Michael Sinha @DrSinhaEsq Hi all, Michael from Boston, thought I'd share photos from #insulin4all @RightCareNow march in Boston a few weeks ago, where we discussed Shane's tragic situation and other patient stories #hcldr @hcldr @JoeBabaian @Colin_Hung https://t.co/bHMBBtbony |
| Sally James @jamesian @Kidfears99 @lollydaggle I like sharing it. Reminds me of the hockey-stick and climate but that's a different discussion. #hcldr |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet T2 I think the formidable barrier to remedy drug pricing is that Pharma industry, Insur Corps, PBMs & the govโt (via lobbyists) managed to create v opaque structure for each patient, and when criticized they can use it as a smoke screen & point the finger at other parties.#hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @EMoriartyWade @hcldr Hi Erin, so happy to see you! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @EMoriartyWade: @hcldr T1 Consider allowing import of manufactured insulin to boost supply in America...from what I can tell it looks like manufactured insulin is only made in US but I know plenty of life-saving drugs are imported. #hcldr |
| Mariah Obiedzinski @MariahWrites T1: Not everyone can afford to go to Canada ... or take that risk. Shameful that people have to resort to being sneaky to STAY ALIVE. #diabetes #insulin4all #hcldr |
| Mark Milligan @MarkMilliganDPT RT @jamesian: T1 #hcldr Great graphic from #insulin4all https://t.co/2DDyjavBvm |
| Susan Woolner, CPXP @susanwoolner RT @DrSinhaEsq: Hi all, Michael from Boston, thought I'd share photos from #insulin4all @RightCareNow march in Boston a few weeks ago, where we discussed Shane's tragic situation and other patient stories #hcldr @hcldr @JoeBabaian @Colin_Hung https://t.co/bHMBBtbony |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @DrSinhaEsq @RightCareNow @hcldr @Colin_Hung Hello Michael! #hcldr |
| Jamie Martin @DavisJamie77 This. Exactly. #hcldr ๐๐๐ https://t.co/IGM8T2ydeV |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 While I agree with the principle there is still a challenge as we could spend every last $$$ and resource on #healthcare on life saving Rx - it is never quite that simple #hcldr https://t.co/ZwwvOKrHNE |
| Erin Moriarty Wade @EMoriartyWade RT @drnic1: T1 Take a deep dive into cost comparisons in this excllent interactive @tableau data set to see the disparity between the US and the Rest of the world #diabetes #hcldr https://t.co/KOUpdPsTL0 https://t.co/O21jwu1dyL |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @DrSinhaEsq: Hi all, Michael from Boston, thought I'd share photos from #insulin4all @RightCareNow march in Boston a few weeks ago, where we discussed Shane's tragic situation and other patient stories #hcldr @hcldr @JoeBabaian @Colin_Hung https://t.co/bHMBBtbony |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @drnic1: While I agree with the principle there is still a challenge as we could spend every last $$$ and resource on #healthcare on life saving Rx - it is never quite that simple #hcldr https://t.co/ZwwvOKrHNE |
| Enlightening Results ๐ก @GraceCordovano @DrDooleyMD There are no words. #hcldr |
| Heather McCullen @H_SalemOaks @jeremycoleman What would this look like in your opinion? Less regulation for drug companies? More insurance options? #hcldr |
| Enlightening Results ๐ก @GraceCordovano @ZHeatherChamp Glad you could join us! #hcldr |
| Colin Hung @Colin_Hung @MTL613 T1 Agree. Some diseases (maybe most) don't care about ethno or socioeconomic boundaries, but it's hard to get rest when you are working 3 jobs vs when you can afford to take a month off to recover #hcldr |
| Jamie Roger @JamieRoger8 @EMRAnswers Even if it isn't life or death, no one should ever have to choose between meds and food, they should both be available in some way. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @DrDooleyMD Thank you for joining us tonight Victoria. #hcldr |
| Mark Milligan @MarkMilliganDPT @JamieRoger8 @hcldr Too many people are dying over $$$$. #HCLDR |
| Laura Appel @lauradianeappel T1 The price increase for this โoldโ drug is bizarre and threatening. But undoing market forces is tough through legislation/administration. What about a nonprofit buying an insulin producer and setting its own price? #hcldr https://t.co/f5ziWEM5m5 |
| Dr. Victoria Dooley @DrDooleyMD RT @GraceCordovano: @DrDooleyMD There are no words. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @lauradianeappel: T1 The price increase for this โoldโ drug is bizarre and threatening. But undoing market forces is tough through legislation/administration. What about a nonprofit buying an insulin producer and setting its own price? #hcldr https://t.co/f5ziWEM5m5 |
| Jamie Martin @DavisJamie77 @EMRAnswers Amen, my friend. Amen. #hcldr |
| Laura Marston @Kidfears99 Iโve been fighting for #insulin4all since 2012, when the owner of the law firm where I was practicing died suddenly and I became โuninsurable.โ I paid $2,880 a month for the healthcare I need to stay alive, the largest portion of which was insulin. #hcldr |
| Colin Hung @Colin_Hung @DrSinhaEsq @RightCareNow @hcldr @JoeBabaian Thanks for sharing Michael. We love that you are joining the conversation! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @lauradianeappel Hi Laura, thanks for bringing you voice here tonight! #hcldr |
| Mariah Obiedzinski @MariahWrites RT @Colin_Hung: @MariahWrites T1 I wonder if it's just b/c the outrage level hasn't reach the point where action is taken. We didn't want to see children going to school hungry & we did something. Now it's time to do something for access to life-saving drugs/therapies #hcldr |
| Susan Woolner, CPXP @susanwoolner Welcome Laura - thanks for joining us tonight. Have you ever been without insurance or have you delayed or avoided changing jobs to keep the insurance you have? #hcldr https://t.co/lNidz8vqDk |
| Colin Hung @Colin_Hung @MelindaMWedding Hello Melinda! #hcldr |
| Sarah Greene @researchmatters Laura that is both unfathomable and unconscionable. #hcldr https://t.co/P1RlALvNkL |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet Oops sorry for tweeting the wrong topic! (It's been a long while and I'm already dizzy w. #HCLDR pace...๐) |
| Jamie Roger @JamieRoger8 @drnic1 I meant #funding shouldn't be what is preventing a person from living if the disease/meds are common. Treatments should be #affordable #hcldr |
| Heather McCullen @H_SalemOaks @EMoriartyWade @hcldr You can already get some older kinds of insulin over the counter. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T1: It is not a specialty drug that should be limited. Insulin IMO is a right, not a privilege. Decades ago we said dialysis is a right. #hcldr Insulin in America: A Right or a Privilege?: https://t.co/rgR8ccVzk7 |
| Sally James @jamesian T1 - Would campaign by parents/caregivers abt #insulin4all finally sway policy folks to order price controls? #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 @Colin_Hung @MariahWrites Just donโt think outrage is enough to solve complex #economic problems in #healthcare #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @jamesian: @Kidfears99 She's not exaggerating. #hcldr https://t.co/sicxzN5YUL |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @Kidfears99: Hi #hcldr Iโm Laura and Iโve had Type 1 going on 22 years. Iโve used Humalog the entire time. Itโs remained unchanged, except the price has increased over 1200% since my diagnosis at age 14. #insulin4all |
| Jamie Martin @DavisJamie77 RT @Colin_Hung: @MariahWrites T1 I wonder if it's just b/c the outrage level hasn't reach the point where action is taken. We didn't want to see children going to school hungry & we did something. Now it's time to do something for access to life-saving drugs/therapies #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba T1 The legislation aims to remove the burden of excessive cost sharing for patients who need high-cost medications but we don't protect the protection. Patients & providers, IMHO, need to be better informed & empowered to ensure access is not stripped away #hcldr https://t.co/pop3PHUPYp |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 RT @DrSinhaEsq: Hi all, Michael from Boston, thought I'd share photos from #insulin4all @RightCareNow march in Boston a few weeks ago, where we discussed Shane's tragic situation and other patient stories #hcldr @hcldr @JoeBabaian @Colin_Hung https://t.co/bHMBBtbony |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet T1 I strongly feel essential life-sustaining drugs like insulin must be protected by the govโt from price gouging, as weโve been seen over & over, free market will take advantage of peopleโs desperate needs! #hcldr |
| Enlightening Results ๐ก @GraceCordovano @EMRAnswers It's so true Linda! So many patients have strategies to simply try to survive: cutting doses, using old/expired doses, purchasing drugs from people whose loved ones have passed away. All to simply survive. #hcldr |
| Mariam Jacob @MariamSJacob @hcldr T1 Access to life saving drugs shouldn't be tied to profitability for Pharma companies. In order to live we need food, water, shelter, and access to life saving drugs. #hcldr |
| Chelsea Friend @kiwifreund T1: This is a constant topic for my bank account. Meds or rent? Meds or food? Meds or utilities? #hcldr https://t.co/tk7tIKi7pc |
| Laura Marston @Kidfears99 Iโve made every decision in my life based on whether I would be able to afford insulin. And without insurance, even as a DC attorney, I couldnโt. Thatโs not freedom. #hcldr #insulin4all |
| Susan Woolner, CPXP @susanwoolner RT @Colin_Hung: @MTL613 T1 That's the paradox. Those in most need of access usually are the ones that can't afford it. Those that can afford it, usually have lifestyles that don't make them as susceptible to certain conditions. Gotta break that cycle #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @danmunro Dan, thank you for joining, I know the time is tight - means a lot to me personally. #hcldr |
| Jamie Roger @JamieRoger8 @MarkMilliganDPT @hcldr Agreed #hcldr |
| Enlightening Results ๐ก @GraceCordovano RT @NathanGrunewald: T1: T1: It is not a specialty drug that should be limited. Insulin IMO is a right, not a privilege. Decades ago we said dialysis is a right. #hcldr Insulin in America: A Right or a Privilege?: https://t.co/rgR8ccVzk7 |
| Jeremy Coleman @jeremycoleman @drlfarrell Not to mention NHS, marke it clear today that free care isn't guaranteed care. #hcldr |
| Bingle @TheBingle @hcldr T1 I'm caught up in too much bureaucracy to think about it with any clarity. However, no person in America or any other country should be w/o necessary medications. Has to be a change in medicine of today! #hcldr |
 | Nirav J. Modi @NiravJModi Hi everyone! Nirav @cariumcares joining from Chicago... Sorry I am a bit late. #hcldr |
| Colin Hung @Colin_Hung @MariahWrites T1 We have yet to see a flood of healthcare refugee claims in Canada, but I often wonder how long before that happens. Not all drugs are affordable up here, but insulin prices have not risen as much as they have in other countries. #hcldr |
| Jamie Roger @JamieRoger8 @NathanGrunewald always is #hcldr |
| Mariah Obiedzinski @MariahWrites @drnic1 @Colin_Hung Obviously. But group outrage can incite change. #hcldr |
| Sally James @jamesian @MarkMilliganDPT @JamieRoger8 @hcldr Seattle's @fredhutch published this story https://t.co/3EJoIpAo9g #bankruptcy #cancer #hcldr |
 | TJ Fitzpatrick @tj_fitzpatrick RT @jamesian: @Kidfears99 She's not exaggerating. #hcldr https://t.co/sicxzN5YUL |
| Mariah Obiedzinski @MariahWrites RT @Colin_Hung: @MariahWrites T1 We have yet to see a flood of healthcare refugee claims in Canada, but I often wonder how long before that happens. Not all drugs are affordable up here, but insulin prices have not risen as much as they have in other countries. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @NiravJModi @cariumcares Welcome Nirav! Great seeing you. No worries :) #hcldr |
| Enlightening Results ๐ก @GraceCordovano RT @drlfarrell: |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @kiwifreund: T1: T1: This is a constant topic for my bank account. Meds or rent? Meds or food? Meds or utilities? #hcldr https://t.co/tk7tIKi7pc |
| Jamie Roger @JamieRoger8 @jamesian @MarkMilliganDPT @hcldr @fredhutch I'll check it out! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @kkcorbet: T1 I strongly feel essential life-sustaining drugs like insulin must be protected by the govโt from price gouging, as weโve been seen over & over, free market will take advantage of peopleโs desperate needs! #hcldr |
| Lisa Davis Budzinski @lisadbudzinski RT @jamesian: @Kidfears99 She's not exaggerating. #hcldr https://t.co/sicxzN5YUL |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @drnic1: @Colin_Hung @MariahWrites Just donโt think outrage is enough to solve complex #economic problems in #healthcare #hcldr |
| Colin Hung @Colin_Hung @drnic1 @MariahWrites T1 I can see that. I wish outrage wasn't needed, but it does seem to be a precursor to action in many cases. Are we there? or is the outrage still too "niche" for widespread action to take hold? #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @NathanGrunewald: T1: T1: It is not a specialty drug that should be limited. Insulin IMO is a right, not a privilege. Decades ago we said dialysis is a right. #hcldr Insulin in America: A Right or a Privilege?: https://t.co/rgR8ccVzk7 |
| HCLDR Moderator @hcldr Just 1 minute until T2! #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 T2 The Shkreli effect that demands profit and return to investors above all else will continue to drive #pharma behavior and all #healthcare - the model for payment and return on investment has to be changed #hcldr #diabetes https://t.co/B4MtEbKdsP |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @drnic1: T2 The Shkreli effect that demands profit and return to investors above all else will continue to drive #pharma behavior and all #healthcare - the model for payment and return on investment has to be changed #hcldr #diabetes https://t.co/B4MtEbKdsP |
| Mark Milligan @MarkMilliganDPT @MariahWrites @drnic1 @Colin_Hung Consumers are going to be the ones that have to bring the outrage. They have to learn that change is only going to come if demanded. #HCLDR |
| Jamie Martin @DavisJamie77 @MariahWrites Dealt with this last fall for my dad. Diagnosed w/ cancer & prescribed med at $3K/mo after insurance. Found out it's cheaper to fly to Canada once a month and get them there - where same drug costs $9. Insanity. #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @Elizabe85727641: T1 Develop & require negotiation strategies for all Rx between patients/insurance companies, businesses, public health settings, and state/national legislators. Measure via improved health status rather than continued illness. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @drnic1 I love this picture. #hcldr https://t.co/XKrqHgOsUk |
| Bonnie C. Sheeren, BCPA @bonniesheeren RT @Kidfears99: Iโve made every decision in my life based on whether I would be able to afford insulin. And without insurance, even as a DC attorney, I couldnโt. Thatโs not freedom. #hcldr #insulin4all |
| Susan Woolner, CPXP @susanwoolner RT @RBlount: Itโs the kind of stuff that will make is all sick! #hcldr https://t.co/FmtRmhStxA |
| Bingle @TheBingle RT @jamesian: @MarkMilliganDPT @JamieRoger8 @hcldr Seattle's @fredhutch published this story https://t.co/3EJoIpAo9g #bankruptcy #cancer #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @MarkMilliganDPT: @MariahWrites @drnic1 @Colin_Hung Consumers are going to be the ones that have to bring the outrage. They have to learn that change is only going to come if demanded. #HCLDR |
| Nirav J. Modi @NiravJModi @jhoronjeff Happy Birthday in advance and enjoy your family time. #hcldr |
| Chelsea Friend @kiwifreund Something to think about: When a med is OTC, then Medicaid refuses to cover it. When you don't have cash, Medicaid is a huge help. When they rescind their help, you have to go without. Speaking from direct experience. #hcldr https://t.co/PpWwmSx9rR |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @hcldr: Just 1 minute until T2! #hcldr |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet RT @drnic1: T2 The Shkreli effect that demands profit and return to investors above all else will continue to drive #pharma behavior and all #healthcare - the model for payment and return on investment has to be changed #hcldr #diabetes https://t.co/B4MtEbKdsP |
| Mariam Jacob @MariamSJacob @Kidfears99 I'm so sorry. I agree with you. That's a prison. #insulin4all. #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 @DrDooleyMD I believe this is true for many drug Rx ordered on mail order vs bought innpharmacy #hcldr |
| HCLDR Moderator @hcldr Time for T2: What do you see as the major impediments to effective change of the current drug pricing paradigm? #hcldr https://t.co/gKCK45cfdh |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @hcldr: Time for T2: Time for T2: What do you see as the major impediments to effective change of the current drug pricing paradigm? #hcldr https://t.co/gKCK45cfdh |
| Colin Hung @Colin_Hung @kkcorbet @JoeBabaian T1 So tricky. Agree that something needs to be done, but there is a lesson to be learned from the debacle that has become Dialysis. https://t.co/cVUd4RCh2q #hcldr |
| Jamie Martin @DavisJamie77 RT @ShereesePubHlth: T1 The legislation aims to remove the burden of excessive cost sharing for patients who need high-cost medications but we don't protect the protection. Patients & providers, IMHO, need to be better informed & empowered to ensure access is not stripped away #hcldr https://t.co/pop3PHUPYp |
| Colin Hung @Colin_Hung RT @hcldr: Time for T2: Time for T2: What do you see as the major impediments to effective change of the current drug pricing paradigm? #hcldr https://t.co/gKCK45cfdh |
| Jamie Roger @JamieRoger8 @lollydaggle I like the thought of creating a safety net to catch those who are unable to afford #medicine or #treatment. Not a funding campaign but a plan in place to help them #hcldr |
| Erin Moriarty Wade @EMoriartyWade @hcldr T1 Could we let physicians and clinics sell insulin directly to their patients (much like some urgent care clinics can fill basic prescriptions for antibiotics etc at reasonable prices)? #hcldr |
| Sarah Greene @researchmatters I hate to admit it, but chats like this one always leave me incredibly disheartened. We need collective volition to tackle #healthcare costs. But I have yet to see true stakeholder alignment. #frustrated #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @EMoriartyWade: @hcldr T1 Could we let physicians and clinics sell insulin directly to their patients (much like some urgent care clinics can fill basic prescriptions for antibiotics etc at reasonable prices)? #hcldr |
| Jeremy Coleman @jeremycoleman @drnic1 There is also a need for IP law reform so companies stop playing the patent game to drive up prices without creating better outcomes. #hcldr |
| Mariah Obiedzinski @MariahWrites @Colin_Hung @drnic1 I'd certainly hope not. #Diabetes is a major risk factor for #heartdisease, and #type2diabetes is running rampant in children. CHILDREN. It's shameful. No other word for it. #hcldr |
| Enlightening Results ๐ก @GraceCordovano @JoeBabaian @drnic1 Couldn't agree more Joe! #hcldr |
| Susan Woolner, CPXP @susanwoolner Yes, this! #hcldr https://t.co/5lbZOb0vKP |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 @QuinlanTurner @hcldr But despite his incarceration Daraprim prices remain stratospheric #hcldr |
| Michael Sinha @DrSinhaEsq A1: Essential drugs should not be cost prohibitive to those who need them. Period. #hcldr https://t.co/GlshWvsp4D |
| Sally James @jamesian @DavisJamie77 @MariahWrites We have research center here has institute devoted to studying financial side of #cancer https://t.co/bhUksKElSA #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @EMRAnswers This is true. Not off topic - this matters. It's a function of access, education and oh, the #SDoH #hcldr |
 | KLAS Research @KLASresearch RT @EMoriartyWade: @hcldr T1 Could we let physicians and clinics sell insulin directly to their patients (much like some urgent care clinics can fill basic prescriptions for antibiotics etc at reasonable prices)? #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @DrSinhaEsq: A1: A1: Essential drugs should not be cost prohibitive to those who need them. Period. #hcldr https://t.co/GlshWvsp4D |
 | Rachel Lewin @MedEdUnicorn @Colin_Hung @drnic1 @MariahWrites Joining late! I do think visibility is part of the problemโIโd imagine that most people donโt know about drug pricing, let alone specific drug pricing, unless theyโre personally impacted. Perhaps more effective PR is the first step? #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @jeremycoleman: T1 Why should we treat drugs, without regard to necessity, any different tha food or shelter? #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @JamieRoger8 @H_SalemOaks @Colin_Hung @StorkBrian @BFMack There is so much stuff I share and want folk to see, but this one practically BELLOWED at me! #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @JoeBabaian @drnic1 You know, admittedly he's a bad guy but if we're being honest, he was doing what all CEO's are hired to do, make money for shareholders. Patients need to escape the notion that healthcare in this country is anything but a business model. #hcldr |
| Erin Moriarty Wade @EMoriartyWade @H_SalemOaks @hcldr I heard an NPR episode about that a long time ago but I remember it was very limited and most diabetics were not aware of it. #hcldr |
 | Patient Critical Co-op @PatientCritical Sorry to miss #hcldr tonight, still finishing work to travel to #hdpalooza tomorrow. Look forward to catching up on what looks like a great discussion! |
| Colin Hung @Colin_Hung T2 Big barrier is the $$$ involved. So many are incented to keep the status quo in place...or even to exploit the drug pricing free-for-all. Hard to change #hcldr |
| Chelsea Friend @kiwifreund T2: Executives and shareholders love their profits in the pharmaceutical world. They don't want to give that up. There are no laws capping the profits. The sky is the limit. #hcldr |
| HealthSparq @HealthSparq RT @hcldr: Time for T2: Time for T2: What do you see as the major impediments to effective change of the current drug pricing paradigm? #hcldr https://t.co/gKCK45cfdh |
| Bingle @TheBingle @QuinlanTurner @hcldr They used him as an example which took pressure off the other executives which have raised Rx prices quietly for a long time. #hcldr |
| Mariah Obiedzinski @MariahWrites @EMoriartyWade @hcldr If all doctors and nurses were trustworthy, then yes. But unfortunately, they're humans like the rest of us and susceptible to immoral behavior like price gouging. #hcldr |
| Enlightening Results ๐ก @GraceCordovano This ๐๐. For those that continue to call #patients consumers...it's an act of survival that drives decisions. Survival. #hcldr https://t.co/9OqubnQk0I |
| Colin Hung @Colin_Hung RT @kiwifreund: T2: T2: Executives and shareholders love their profits in the pharmaceutical world. They don't want to give that up. There are no laws capping the profits. The sky is the limit. #hcldr |
| Bob @RBlount Iโd like to see Fortune 500 bring it too! #hcldr https://t.co/6jiC2Vj05C |
| Heather McCullen @H_SalemOaks @DrDooleyMD It needs to be easier to navigate the system. My preference would be a simpler system where insurers have less power, but in the meantime we at least need to provide assistance to ANYONE who is struggling to navigate the system. #hcldr |
| KLAS Research @KLASresearch @Colin_Hung @kkcorbet @JoeBabaian Looks like a great read. Thanks for sharing, Colin! Adding it to the "for after the chat" list. #hcldr |
| Sally James @jamesian @GraceCordovano @EMRAnswers Patients-caregivers too overwhelmed (often) with immediate coping to launch #lobbying for policy change. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @DrSinhaEsq: A1: A1: Essential drugs should not be cost prohibitive to those who need them. Period. #hcldr https://t.co/GlshWvsp4D |
| PF Anderson @pfanderson@disabled.social @pfanderson @kiwifreund @H_SalemOaks @Colin_Hung @StorkBrian @BFMack I know @SPINNpeddler used to live not too far from there. I bet he knows folk #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MTL613 A lot of folks talking the transparency angle over the past few days. Check the tweets from @danmunro with #hcldr tag for more. Healthy discussion for sure. |
 | Todd Davenport @sunsopeningband RT @ShereesePubHlth: @JoeBabaian @drnic1 You know, admittedly he's a bad guy but if we're being honest, he was doing what all CEO's are hired to do, make money for shareholders. Patients need to escape the notion that healthcare in this country is anything but a business model. #hcldr |
 | Dr. Nancy Kusmaul @nancy_kusmaul RT @TextraHealth: @JoeBabaian @pfanderson @SusannahFox @RBlount @nickisnpdx @mikebiselli @TomVargheseJr @jhoronjeff @choo_ek @jamcbride @garyleethompson @andrewintech โCare is not defined by its absence, but by its presence.โ #hcldr https://t.co/XTVCM6sOUH |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet @Colin_Hung @JoeBabaian Thanks Colin for this- will have to get back on this later! #hcldr |
| Colin Hung @Colin_Hung RT @EMoriartyWade: @H_SalemOaks @hcldr I heard an NPR episode about that a long time ago but I remember it was very limited and most diabetics were not aware of it. #hcldr |
| Mark Milligan @MarkMilliganDPT @researchmatters II agree Sarah but conversations like these can start the path! Consumers are going to have to rise up because all the people making money aren't going to stop on their own... #HCLDR |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @JoeBabaian @drnic1 If patients and providers looked at drugs, the same as industry, they could shift the market. #hcldr |
| Jamie Roger @JamieRoger8 @pfanderson @H_SalemOaks @Colin_Hung @StorkBrian @BFMack SO THANKFUL FOR THIS ONE #hcldr #opendialogue This is a topic that taps into the $$$ aspect of all of healthcare, not just insulin. I loved the comic writeup as well! |
| Jamie Martin @DavisJamie77 a social worker once told me that the average American family is one serious illness away from homelessness - simply not prepared for the cost of getting sick. #hcldr https://t.co/kHxyku3zrk |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @natarpr @danmunro Two amazing cheats, I agree. :) #hcldr |
| Sarah Greene @researchmatters My โtalking pointโ for intractable issues like this is that there needs to be a compelling business case, evidence base, and human face. #T1D has all three. #hcldr |
| Mariam Jacob @MariamSJacob @hcldr T2: Lack of transparency. How much does it REALLY cost to make those drugs? As long as there's a lack of transparency, Pharma companies can continue to profit while patients experience fewer choices, higher premiums, and higher deductibles. #hcldr #insulin4all #ptexp |
| Heather McCullen @H_SalemOaks RT @DavisJamie77: a social worker once told me that the average American family is one serious illness away from homelessness - simply not prepared for the cost of getting sick. #hcldr https://t.co/kHxyku3zrk |
| Mariah Obiedzinski @MariahWrites RT @DavisJamie77: @MariahWrites Dealt with this last fall for my dad. Diagnosed w/ cancer & prescribed med at $3K/mo after insurance. Found out it's cheaper to fly to Canada once a month and get them there - where same drug costs $9. Insanity. #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @MariamSJacob: @hcldr T2: @hcldr T2: Lack of transparency. How much does it REALLY cost to make those drugs? As long as there's a lack of transparency, Pharma companies can continue to profit while patients experience fewer choices, higher premiums, and higher deductibles. #hcldr #insulin4all #ptexp |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @KLASresearch @Colin_Hung @kkcorbet Hey, almost missed you! Welcome! :) #hcldr |
| Colin Hung @Colin_Hung RT @MariahWrites: @Colin_Hung @drnic1 I'd certainly hope not. #Diabetes is a major risk factor for #heartdisease, and #type2diabetes is running rampant in children. CHILDREN. It's shameful. No other word for it. #hcldr |
| Bingle @TheBingle Possibly if done correctly. #hcldr https://t.co/7JadIY0kQA |
| KLAS Research @KLASresearch T2: Lack of transparency, patient education, and adequate regulation of price gouging. #hcldr https://t.co/zNwIYLV2Cl |
| Colin Hung @Colin_Hung RT @jeremycoleman: @drnic1 There is also a need for IP law reform so companies stop playing the patent game to drive up prices without creating better outcomes. #hcldr |
| Bob @RBlount RT @TextraHealth: @JoeBabaian @pfanderson @SusannahFox @RBlount @nickisnpdx @mikebiselli @TomVargheseJr @jhoronjeff @choo_ek @jamcbride @garyleethompson @andrewintech โCare is not defined by its absence, but by its presence.โ #hcldr https://t.co/XTVCM6sOUH |
| Erin Moriarty Wade @EMoriartyWade @MariahWrites @hcldr Agreed. But the current situation is pretty immoral already so Iโm not sure thatโs a strong enough deterrent. #hcldr |
| Mark Milligan @MarkMilliganDPT @RBlount When will companies understand that #healthy employees are better for everyone!!! #HCLDR |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @mattbmartin @MTL613 try this: https://t.co/UaU4AwlJzS (turn off retweets, much easier to follow) #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @susanwoolner We really need to plan this. :) We can fix that, I'm sure #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @JoeBabaian: @mattbmartin Thank you Matt. It resonated up from our community beginning with @pfanderson sharing it. I couldn't resist making it tonight's topic. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @TheBingle: Possibly if done correctly. #hcldr https://t.co/7JadIY0kQA |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MTL613 @danmunro Expanding the groups that are talking is the key - blow the silos open and pull more folks in until it clicks. :) #hcldr |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO This. Price transparency requires cost transparency. However, in general, healthcare does not know the true costs of the workflows necessary to support its services. But then I would say that. #hcldr https://t.co/AvMteFeujI |
| Jamie Martin @DavisJamie77 YES. #hcldr https://t.co/S8NmjmZofG |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 RT @TheBingle: @QuinlanTurner @hcldr They used him as an example which took pressure off the other executives which have raised Rx prices quietly for a long time. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @JamieRoger8: @pfanderson @H_SalemOaks @Colin_Hung @StorkBrian @BFMack SO THANKFUL FOR THIS ONE #hcldr #opendialogue This is a topic that taps into the $$$ aspect of all of healthcare, not just insulin. I loved the comic writeup as well! |
| Jamie Roger @JamieRoger8 @kiwifreund You shouldn't be put in that situation. When you can afford at least the basics in life, adding medication costs to that equation, SHOULDN'T be the tipping point. I am #heartbroken that those are your choices. #hcldr |
| Rachel Lewin @MedEdUnicorn @JamieRoger8 @lollydaggle The problem there is that we canโt agree as human beings that this is a priority! Isnโt this the goal of #medicaid? which we keep reducing, and increasing vulnerability. A safety net needs to catch everyone and be divorced from ideology (ha) #hcldr |
| Mark Milligan @MarkMilliganDPT @hcldr T2: MONEY, MONEY, MONEY. #HCLDR |
| Jamie Roger @JamieRoger8 RT @Kidfears99: Iโve made every decision in my life based on whether I would be able to afford insulin. And without insurance, even as a DC attorney, I couldnโt. Thatโs not freedom. #hcldr #insulin4all |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MTL613 Well @Colin_Hung and I do have an #AI to help. NOT! Never easy! :) #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @Colin_Hung: @MariahWrites T1 I wonder if it's just b/c the outrage level hasn't reach the point where action is taken. We didn't want to see children going to school hungry & we did something. Now it's time to do something for access to life-saving drugs/therapies #hcldr |
| Bob @RBlount Clearly a good avenue to drive change. #hcldr https://t.co/iMpqSDjogY |
| Colin Hung @Colin_Hung @researchmatters It can be, but do we need complete alignment or to just enough people need to get motivated and move the needle together? I believe that if we can get enough people pulling on the rope we can make a small difference. Enough people and enough ropes, then real change happens #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @MarkMilliganDPT: @hcldr T2: @hcldr T2: MONEY, MONEY, MONEY. #HCLDR |
| Erin Moriarty Wade @EMoriartyWade @MelindaMWedding @H_SalemOaks @hcldr I donโt know a lot about that but it sounds like it could be promising. #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 RT @researchmatters: My โtalking pointโ for intractable issues like this is that there needs to be a compelling business case, evidence base, and human face. #T1D has all three. #hcldr |
| Colin Hung @Colin_Hung RT @JoeBabaian: @MTL613 Well @Colin_Hung and I do have an #AI to help. NOT! Never easy! :) #hcldr |
| ElizabethKelly, Ph.D @Elizabe85727641 T2 Major barrier is federal government who do not allow Medicare/Medicaid to negotiate Rx prices. This group have limited voice, a few organizations try to advocate for them (AARP) who are also associated with health insurance companies.#hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @JamieRoger8 @H_SalemOaks @Colin_Hung @StorkBrian @BFMack Comics in healthcare is really quite effective at getting messages across, storytelling, empathy building. #GraphicMedicine is an emerging health literacy tool #hcldr |
| Colin Hung @Colin_Hung RT @JoeBabaian: @MTL613 @danmunro Expanding the groups that are talking is the key - blow the silos open and pull more folks in until it clicks. :) #hcldr |
| Dr. Victoria Dooley @DrDooleyMD RT @drnic1: T2 The Shkreli effect that demands profit and return to investors above all else will continue to drive #pharma behavior and all #healthcare - the model for payment and return on investment has to be changed #hcldr #diabetes https://t.co/B4MtEbKdsP |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T2: Limiting competition in a for profit environment to treat life threatening conditions results in high demand with limited supply. That puts the price point at the top. Not saying I agree, but that is where we are in USA. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @drnic1: T1 Oh and BTW: Insulin's Canadian discoverers sold the patent to their university for $1, stating that profit was not their goal #hcldr https://t.co/tmhgt1UhBx |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @hcldr: Time for T1: Time for T1: How should access to a drug that is necessary for life for ~1.5M Americans, such as insulin, be handled? What can we learn from other nations on this? #hcldr https://t.co/8OvgEnHOt4 |
| Bingle @TheBingle T1 Fascinating. I believe @ShereesePubHlth would be great with the SALE SIGNS for the patients to see! So They Know... #hcldr https://t.co/aUGcc9EIBx |
| Laura Appel @lauradianeappel T2 Strength of those companies/individuals served by the system as is. Even #transparency wonโt change things fast enough for people like Shane. And philosophical opposition to #Medicaid as insurance. #hcldr https://t.co/bYaUo5Ksbm |
| Colin Hung @Colin_Hung RT @wareFLO: This. Price transparency requires cost transparency. However, in general, healthcare does not know the true costs of the workflows necessary to support its services. But then I would say that. #hcldr https://t.co/AvMteFeujI |
| Mark Milligan @MarkMilliganDPT @RBlount The #data is there. #HCLDR |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 RT @drlfarrell: |
| Colin Hung @Colin_Hung @MTL613 @mattbmartin It's definitely flying tonight. Even Tweetdeck having trouble keeping up #hcldr |
| Inspire @InspireIsHealth RT @hcldr: Time for T2: Time for T2: What do you see as the major impediments to effective change of the current drug pricing paradigm? #hcldr https://t.co/gKCK45cfdh |
| Heather McCullen @H_SalemOaks T2: The main barrier I see is lack of creativity. Too many people say "but company's need to make money!" and then don't change anything. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @H_SalemOaks: T2: T2: The main barrier I see is lack of creativity. Too many people say "but company's need to make money!" and then don't change anything. #hcldr |
| Jamie Roger @JamieRoger8 #yass the safety net that once #existed (to some degree) is being taken away without a backup in place. The systemic problems that exist in all areas of the #healthcare system are unreal. #hcldr https://t.co/P22jO8oc8c |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @lauradianeappel: T2 Strength of those companies/individuals served by the system as is. Even #transparency wonโt change things fast enough for people like Shane. And philosophical opposition to #Medicaid as insurance. #hcldr https://t.co/bYaUo5Ksbm |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @RBlount: Clearly a good avenue to drive change. #hcldr https://t.co/iMpqSDjogY |
| Sally James @jamesian @JoeBabaian @MTL613 @danmunro What if @walmart or @amazon tried to negotiate cheaper #insulin for their employees? Kind of bulk-buy technique? #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba T1 Also, why don't we have patients, providers & advocates educating on PAPs? Through patient assistance programs, many pharmaceutical cos offer limited quantities of free or low-cost meds to pts who either don't qualify for or aren't aided by other forms of assistance #hcldr https://t.co/T0hIfNYU8k |
 | Kentucky #insulin4all @KYinsulin4all Hello! We are volunteer #Insulin4All advocates working to get pricing transparency legislation in Kentucky, Ohio, and Indiana. We would appreciate any retweets and follows. #hcldr |
| Michael Sinha @DrSinhaEsq @hcldr #hcldr Each graph shows prices -- two comparable insulin products made by two different manufacturers -- rising almost exponentially over time. Can't see two lines most of the time? Neither can I. Prices rising in lock-step, raising antitrust concerns. Source: @businessinsider https://t.co/7WpqshCW5J |
| Sarah Greene @researchmatters Maybe some veryvisuble long-form journalism from @POLITICOPulse team, @statnews or other @AHCJ journalists would bring overdue attention? @jamesian @rachanadixit @jenhab @ddiamond #hcldr #T1D #Insulin4all |
| Jamie Roger @JamieRoger8 @pfanderson @H_SalemOaks @Colin_Hung @StorkBrian @BFMack and an awesome title #graphicmedicine Love this and the universality of comics. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @drnic1: T1 Oh and BTW: Insulin's Canadian discoverers sold the patent to their university for $1, stating that profit was not their goal #hcldr https://t.co/tmhgt1UhBx |
| Enlightening Results ๐ก @GraceCordovano @QuinlanTurner @hcldr Many guilty parties here. Pharma, payers, government, PBMs, pharmacies. Many in need are powerless. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @NathanGrunewald: T2: T2: Limiting competition in a for profit environment to treat life threatening conditions results in high demand with limited supply. That puts the price point at the top. Not saying I agree, but that is where we are in USA. #hcldr |
| Kentucky #insulin4all @KYinsulin4all RT @Kidfears99: Iโve been fighting for #insulin4all since 2012, when the owner of the law firm where I was practicing died suddenly and I became โuninsurable.โ I paid $2,880 a month for the healthcare I need to stay alive, the largest portion of which was insulin. #hcldr |
| Colin Hung @Colin_Hung RT @DrSinhaEsq: @hcldr #hcldr Each graph shows prices -- two comparable insulin products made by two different manufacturers -- rising almost exponentially over time. Can't see two lines most of the time? Neither can I. Prices rising in lock-step, raising antitrust concerns. Source: @businessinsider https://t.co/7WpqshCW5J |
| Mariah Obiedzinski @MariahWrites T2: As many have suggested, a unified voice is lacking. Enough people have to be moved, educated, and vocal to effect societal change - look at the kids in Florida and the #gunsafety revolution! Timing and #data are key. #hcldr |
| Susan Woolner, CPXP @susanwoolner It would be interesting if one of the mega drug chains @Walgreens @cvspharmacy or even @amazon decided that insulin would be $10 (for example) with transfer of 2 or more prescriptions or free with @amazon prime. That would shake the market #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @GraceCordovano: @QuinlanTurner @hcldr Many guilty parties here. Pharma, payers, government, PBMs, pharmacies. Many in need are powerless. #hcldr |
| Kentucky #insulin4all @KYinsulin4all RT @NathanGrunewald: T1: T1: It is not a specialty drug that should be limited. Insulin IMO is a right, not a privilege. Decades ago we said dialysis is a right. #hcldr Insulin in America: A Right or a Privilege?: https://t.co/rgR8ccVzk7 |
| Rachel Lewin @MedEdUnicorn RT @pfanderson: @JamieRoger8 @H_SalemOaks @Colin_Hung @StorkBrian @BFMack Comics in healthcare is really quite effective at getting messages across, storytelling, empathy building. #GraphicMedicine is an emerging health literacy tool #hcldr |
| Lisa Davis Budzinski @lisadbudzinski RT @EMRAnswers: T2: |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MTL613 @SharonLeeMoon Yes they have and it gives me hope! #hcldr cc @GilmerHealthLaw |
| Amanda G @LAlupusLady A2 Profit$ for the Rx companies major hurdle. #hcldr https://t.co/Hlmf6sRebd |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @pfanderson: @JamieRoger8 @H_SalemOaks @Colin_Hung @StorkBrian @BFMack Comics in healthcare is really quite effective at getting messages across, storytelling, empathy building. #GraphicMedicine is an emerging health literacy tool #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @pfanderson @JamieRoger8 @H_SalemOaks @Colin_Hung @StorkBrian @BFMack I'll say! #hcldr |
| Mariah Obiedzinski @MariahWrites T2: I could definitely see this happening! #hcldr https://t.co/QyvFSWCuF3 |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @Elizabe85727641: T2 Major barrier is federal government who do not allow Medicare/Medicaid to negotiate Rx prices. This group have limited voice, a few organizations try to advocate for them (AARP) who are also associated with health insurance companies.#hcldr |
| Lisa Davis Budzinski @lisadbudzinski RT @DrSinhaEsq: @hcldr #hcldr Each graph shows prices -- two comparable insulin products made by two different manufacturers -- rising almost exponentially over time. Can't see two lines most of the time? Neither can I. Prices rising in lock-step, raising antitrust concerns. Source: @businessinsider https://t.co/7WpqshCW5J |
| Jamie Martin @DavisJamie77 Exactly. Every other product we purchase, we know exactly how much we're paying - except for healthcare. #hcldr https://t.co/D5qipAFpkB |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @paul_griffiths Just a bit! #hcldr |
| Sally James @jamesian @NathanGrunewald T2 - For anyone who wishes to go deeper - https://t.co/gEcQMCclrL @UniofOxford analysis of #international #insulin prices #hcldr |
| Jamie Roger @JamieRoger8 @DavisJamie77 such a true statement from that social worked #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @researchmatters: I hate to admit it, but chats like this one always leave me incredibly disheartened. We need collective volition to tackle #healthcare costs. But I have yet to see true stakeholder alignment. #frustrated #hcldr |
| Erin Moriarty Wade @EMoriartyWade @hcldr T2 This might be small potatoes but...the limited supply (and choices) of insulin. Create incentives for the development of new forms of insulin. #hcldr |
| Nirav J. Modi @NiravJModi T2: Complexity and misalignment of incentives; there is no backstop. The buck never stops upstream...it just passes thru to the individual. #hcldr. |
| Susan Woolner, CPXP @susanwoolner WTH? That doesn't even make sense. The bait and switch of formulary changes are the bain of my existence. Seriously so much angst that makes people sicker #hcldr https://t.co/zZpkpajgUf |
| Bingle @TheBingle T2 Where we are in USA ... You've said it all! And how far down is USA on overall Healthcare? #hcldr https://t.co/e5ZzQ12vwk |
| Colin Hung @Colin_Hung @jamesian @JoeBabaian @MTL613 @danmunro @Walmart @amazon T2 I think that's what will happen, but then we'll have uneven distribution of medication (again) but if costs continue to rise, at what point do alternatives become attractive? or perhaps new innovation will replace a high priced option? #hcldr Wishful thinking? |
| Sally James @jamesian @MTL613 @JoeBabaian @danmunro @Walmart @amazon @t1international Agree. Just seeing the employer self-interest as a stepping stone that reveals inherent injustice for policy level change. #hcldr |
| Mariah Obiedzinski @MariahWrites @natarpr @JoeBabaian @danmunro How is #insulin distributed in other countries? #hcldr |
| Chelsea Friend @kiwifreund @JamieRoger8 Thank you. But as we know, there is nothing special about me, and everyone is one major illess away from being in the same position - unfortunately! That is why we gather and brainstorm. โบ #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @researchmatters I understand! But the good news remains that we see folks that can and WILL make change happen. They are here, now :) #hcldr Great seeing you my friend! |
| Rachel Lewin @MedEdUnicorn @jamesian @JoeBabaian @MTL613 @danmunro @Walmart @amazon This is what Medicare and Medicaid do, right? Negotiate for the lowest price? #hcldr |
| Jamie Roger @JamieRoger8 @mattbmartin @MTL613 try #tweetdeck, makes it SO MUCH EASIER . #hcldr #ialwaysneedhelp |
| Enlightening Results ๐ก @GraceCordovano @ShereesePubHlth This is an excellent place where more can be done to improve point-of-care discussions. Hesitancy to openly & outwardly disseminate PAP in treatment planning. Tsk Tsk #hcldr |
 | Camea @Kamiyamay A2. Lack of real transparency. #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 RT @DrSinhaEsq: @hcldr #hcldr Each graph shows prices -- two comparable insulin products made by two different manufacturers -- rising almost exponentially over time. Can't see two lines most of the time? Neither can I. Prices rising in lock-step, raising antitrust concerns. Source: @businessinsider https://t.co/7WpqshCW5J |
| Dr. Victoria Dooley @DrDooleyMD RT @DrSinhaEsq: @hcldr #hcldr Each graph shows prices -- two comparable insulin products made by two different manufacturers -- rising almost exponentially over time. Can't see two lines most of the time? Neither can I. Prices rising in lock-step, raising antitrust concerns. Source: @businessinsider https://t.co/7WpqshCW5J |
| HCLDR Moderator @hcldr Just 1 minute until T3! #hcldr |
| Susan Woolner, CPXP @susanwoolner Agree. We will plan on FB or FB messenger. I am over at Ann and Main at least once a week now for care of my step father with advanced dementia #hcldr https://t.co/etPFGP784y |
| Sarah Greene @researchmatters @KLASresearch Lobbyists. #hcldr |
| Lisa Davis Budzinski @lisadbudzinski RT @susanwoolner: It would be interesting if one of the mega drug chains @Walgreens @cvspharmacy or even @amazon decided that insulin would be $10 (for example) with transfer of 2 or more prescriptions or free with @amazon prime. That would shake the market #hcldr |
| Amanda G @LAlupusLady RT @Colin_Hung: @jamesian @JoeBabaian @MTL613 @danmunro @Walmart @amazon T2 I think that's what will happen, but then we'll have uneven distribution of medication (again) but if costs continue to rise, at what point do alternatives become attractive? or perhaps new innovation will replace a high priced option? #hcldr Wishful thinking? |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @TheBingle I like to keep things real. Supply and demand for medications is not driven by consumers, it's driven by regulation, unfortunately. And #pharma special interest is all over regulators. I'm just pointing out the obvious #ComeOnSon #hcldr https://t.co/CKXl1fKDre |
| Mark Milligan @MarkMilliganDPT @RBlount In! #HCLDR #WTFix #whisky |
 | Pat Rich @pat_health T1 What national government that can afford it will let its citizens die through lack of a relatively inexpensive medication? #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian Exactly! Mike drop. We need direction not always the same exact path. Together, now, here. Well said @Colin_Hung - no wonder we are friends :) #hcldr https://t.co/F76GfUD6QY |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet Can we possibly (even tho v hard) get rid of some tiers, as well as transparency?? I think we need a radical change in Healthcare! #HCLDR https://t.co/pyj8x1LWM6 |
| Jamie Martin @DavisJamie77 You know, how is it that a gas station owner can be punished for price gouging a couple bucks on his gas prices, but there's no penalty for the drug company that price gouged thousands on a life-saving drug? Makes no sense. #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @GraceCordovano: @ShereesePubHlth This is an excellent place where more can be done to improve point-of-care discussions. Hesitancy to openly & outwardly disseminate PAP in treatment planning. Tsk Tsk #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @pat_health: T1 What national government that can afford it will let its citizens die through lack of a relatively inexpensive medication? #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 RT @jamesian: @NathanGrunewald T2 - For anyone who wishes to go deeper - https://t.co/gEcQMCclrL @UniofOxford analysis of #international #insulin prices #hcldr |
| HCLDR Moderator @hcldr Time for T3: Where should our most urgent focus be: medication access, improved healthcare coverage/access, pricing transparency, or? #hcldr https://t.co/cfDf0GQ8Ll |
| Bob @RBlount RT @lauradianeappel: T2 Strength of those companies/individuals served by the system as is. Even #transparency wonโt change things fast enough for people like Shane. And philosophical opposition to #Medicaid as insurance. #hcldr https://t.co/bYaUo5Ksbm |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 T3 Solutions do not lie in access or coverage but rather in price transparency that relates this to the actual cost of development, production and #innovation for development of #diabetes treatments #hcldr https://t.co/30rZnKjleX |
| Colin Hung @Colin_Hung @EMoriartyWade @hcldr T2 The market does correct itself, but the problem is the gap in between - too many patients suffer while the market sorts itself back to equilibrium #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @pat_health Uhhhh. #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @JamieRoger8: @kiwifreund You shouldn't be put in that situation. When you can afford at least the basics in life, adding medication costs to that equation, SHOULDN'T be the tipping point. I am #heartbroken that those are your choices. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @hcldr: Just 1 minute until T3! #hcldr |
| Dr. Victoria Dooley @DrDooleyMD RT @ShereesePubHlth: T1 Also, why don't we have patients, providers & advocates educating on PAPs? Through patient assistance programs, many pharmaceutical cos offer limited quantities of free or low-cost meds to pts who either don't qualify for or aren't aided by other forms of assistance #hcldr https://t.co/T0hIfNYU8k |
| Bingle @TheBingle T2 Whatever the Market will bear...... #hcldr https://t.co/Sc2I7d3Vw2 |
| Jamie Roger @JamieRoger8 @kiwifreund Truth, but doesn't mean I don't feel just as bad for you as I do for the next person in that position. That's why I entered this discussion and path in life in the first place. #empathy #community #supporteachother #unique #human #hcldr |
| Erin Moriarty Wade @EMoriartyWade RT @Elizabe85727641: T2 Major barrier is federal government who do not allow Medicare/Medicaid to negotiate Rx prices. This group have limited voice, a few organizations try to advocate for them (AARP) who are also associated with health insurance companies.#hcldr |
| Heather McCullen @H_SalemOaks @susanwoolner My husband's insurance likes to switch the brand of insulin they cover a couple times a year ... just to keep things interesting. #hcldr |
| Colin Hung @Colin_Hung RT @hcldr: Time for T3: Where should our most urgent focus be: Time for T3: Where should our most urgent focus be: medication access, improved healthcare coverage/access, pricing transparency, or? #hcldr https://t.co/cfDf0GQ8Ll |
| Mariah Obiedzinski @MariahWrites RT @jamesian: @DavisJamie77 @MariahWrites We have research center here has institute devoted to studying financial side of #cancer https://t.co/bhUksKElSA #hcldr |
| Mark Milligan @MarkMilliganDPT RT @JoeBabaian: Exactly! Mike drop. We need direction not always the same exact path. Together, now, here. Well said @Colin_Hung - no wonder we are friends :) #hcldr https://t.co/F76GfUD6QY |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MTL613 Dan provides me with hours of reading, learning, and calls to arms. :) #hcldr |
| Erin Moriarty Wade @EMoriartyWade RT @jamesian: @JoeBabaian @MTL613 @danmunro What if @walmart or @amazon tried to negotiate cheaper #insulin for their employees? Kind of bulk-buy technique? #hcldr |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Regardless of where you fall on spectrum from healthcare is a right & universal government insurance to healthcare is a scarce economic good subject to market forces, w/o knowing the true costs of healthcare at a granular level, systems of healthcare allocation will fail #hcldr https://t.co/8JyoshyJMU |
| Bingle @TheBingle RT @MariamSJacob: @hcldr T2: @hcldr T2: Lack of transparency. How much does it REALLY cost to make those drugs? As long as there's a lack of transparency, Pharma companies can continue to profit while patients experience fewer choices, higher premiums, and higher deductibles. #hcldr #insulin4all #ptexp |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 T3 But to be fair to #pharma the cost of development and #innovation is high given the low rate of return adn success in drug development - without a return there will be no ongoing and future Drug Development for #diabetes or any other disease #hcldr https://t.co/VIyYR75en6 |
| Amanda G @LAlupusLady @Colin_Hung @jamesian @JoeBabaian @MTL613 @danmunro @Walmart @amazon T2 what if the price of PT became more effective treatment than an Rx? Nice if wellness and maintaining ROM to improve QOL would be the bottom line. (why isn't that way now?) #hcldr |
| Erin Moriarty Wade @EMoriartyWade RT @DrSinhaEsq: A1: A1: Essential drugs should not be cost prohibitive to those who need them. Period. #hcldr https://t.co/GlshWvsp4D |
| Colin Hung @Colin_Hung T3 Access without transparency leads to inefficiency. We had that for years here in Canada. Led to a lot of cost overruns and waste. Transparency is the foundation IMHO #hcldr |
| Erin Moriarty Wade @EMoriartyWade RT @NathanGrunewald: T1: T1: It is not a specialty drug that should be limited. Insulin IMO is a right, not a privilege. Decades ago we said dialysis is a right. #hcldr Insulin in America: A Right or a Privilege?: https://t.co/rgR8ccVzk7 |
| Dr. Victoria Dooley @DrDooleyMD @MelindaMWedding I had one patient who had to get a P.O. Box b/c his insulin would be stolen from his home. ๐ข๐ก #hcldr |
| Chelsea Friend @kiwifreund @JamieRoger8 Well put! #hcldr #empathy #love |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet T3, TRUE Price transparency, because unless we can all see whatโs going on and WHOโs profiteering, better access (unless we can cover 100% of people!) wonโt address the root cause. #HCLDR |
| Bingle @TheBingle @DavisJamie77 Yup. Should be simple comparisons w/pricing. #hcldr |
 | โDustin Millerโ @spdustin @hcldr T2: 1) Drug and genomic patents. The former survives longer than needed to help pharma companies recoup R&D costs; the latter practically ensures monopolies on gene therapy. 2)Transparency in actual costs (inc. R&D) vs retail price. #hcldr |
| โDustin Millerโ @spdustin RT @spdustin: @hcldr T2: @hcldr T2: 1) Drug and genomic patents. The former survives longer than needed to help pharma companies recoup R&D costs; the latter practically ensures monopolies on gene therapy. 2)Transparency in actual costs (inc. R&D) vs retail price. #hcldr |
| Mariam Jacob @MariamSJacob @danmunro @MTL613 @JoeBabaian How can you support a company who places profitability over human suffering? I think as a society, we tend to go for the underdog when egregious behavior is brought to the open and pushed in our face. #hcldr #insulin4all |
| Enlightening Results ๐ก @GraceCordovano @DavisJamie77 Guilty of tax evasion? Tracked down & behind bars. Double standard is crippling. #hcldr |
| Laura Appel @lauradianeappel @MedEdUnicorn @jamesian @JoeBabaian @MTL613 @danmunro @Walmart @amazon I believe (check me on this) that #Medicare is not allowed to do drug price negotiation. Maybe through Part C managed care plans. #hcldr |
| Bob @RBlount I love this. If weโre going to address the root to most of our healthcare problems it starts with #HEALTH #hcldr https://t.co/f8HgoCiCV4 |
| Erin Moriarty Wade @EMoriartyWade RT @Colin_Hung: @EMoriartyWade @hcldr T2 The market does correct itself, but the problem is the gap in between - too many patients suffer while the market sorts itself back to equilibrium #hcldr |
| Susan Woolner, CPXP @susanwoolner But I think all of US #hcldr believe this is a priority. If you think this is priority, chime in. https://t.co/S4jrYcB0cG |
| Joe Babaian ๐บ๐ฆ @JoeBabaian Isn't that the best!? It's like Russian Roulette. Here Heather, try THIS, it might be the SAME or it might NOT work, or maybe just give you HIVES. Are you ready? #casinohealthcare @danmunro #hcldr https://t.co/gr4jE9zd5g |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @Kidfears99: Hi #hcldr Iโm Laura and Iโve had Type 1 going on 22 years. Iโve used Humalog the entire time. Itโs remained unchanged, except the price has increased over 1200% since my diagnosis at age 14. #insulin4all |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @pat_health: T1 What national government that can afford it will let its citizens die through lack of a relatively inexpensive medication? #hcldr |
| Nirav J. Modi @NiravJModi RT @Colin_Hung: T3 Access without transparency leads to inefficiency. We had that for years here in Canada. Led to a lot of cost overruns and waste. Transparency is the foundation IMHO #hcldr |
| Mariah Obiedzinski @MariahWrites @drnic1 It's curious how prices can spike more than 1000% and everyone just grins and bears it. Shouldn't technology get less expensive over time? #hcldr |
 | Janae Sharp @CoherenceMed RT @Colin_Hung: T3 Access without transparency leads to inefficiency. We had that for years here in Canada. Led to a lot of cost overruns and waste. Transparency is the foundation IMHO #hcldr |
| Camea @Kamiyamay Where is our share humanity? It seems to only exist in the positive brainstorming chats, the other public events but is lacking in the general corporate structure-Humanity. #hcldr https://t.co/1HDlhNFmcR |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @DrSinhaEsq: @hcldr #hcldr Each graph shows prices -- two comparable insulin products made by two different manufacturers -- rising almost exponentially over time. Can't see two lines most of the time? Neither can I. Prices rising in lock-step, raising antitrust concerns. Source: @businessinsider https://t.co/7WpqshCW5J |
| Jamie Martin @DavisJamie77 @DrDooleyMD I think having doctors like you who are willing to educate patients about RX options is a major plus. Thank you for doing that! I wish there were more like you - bc you're right, sometimes patients just don't know what options they have. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @researchmatters It's good. Talking about it, acknowledging the barriers, and discussing solutions will lead to the solution. It's why we are here tonight. We all appreciate u being here too. #pinksocks #hcldr |
| Mariah Obiedzinski @MariahWrites RT @hcldr: Time for T3: Where should our most urgent focus be: Time for T3: Where should our most urgent focus be: medication access, improved healthcare coverage/access, pricing transparency, or? #hcldr https://t.co/cfDf0GQ8Ll |
| Pat Rich @pat_health T2 is it the government? (Assume the answer has to be framed as a question) #hcldr |
| Bob @RBlount T3: All the above. #hcldr https://t.co/zDEhX0IwKd |
| Colin Hung @Colin_Hung @drnic1 T3 In Canada there is a law that gas stations have to disclose exactly where the cost of gas goes. ie: X to refinery, Y to taxes, Z to transportation company, etc. We have it for GAS but not for drugs which cost WAAAAY more #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @susanwoolner: But I think all of US #hcldr believe this is a priority. If you think this is priority, chime in. https://t.co/S4jrYcB0cG |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MedEdUnicorn: @JamieRoger8 @lollydaggle The problem there is that we canโt agree as human beings that this is a priority! Isnโt this the goal of #medicaid? which we keep reducing, and increasing vulnerability. A safety net needs to catch everyone and be divorced from ideology (ha) #hcldr |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet RT @Colin_Hung: @researchmatters It can be, but do we need complete alignment or to just enough people need to get motivated and move the needle together? I believe that if we can get enough people pulling on the rope we can make a small difference. Enough people and enough ropes, then real change happens #hcldr |
| Lisa Davis Budzinski @lisadbudzinski RT @DavisJamie77: You know, how is it that a gas station owner can be punished for price gouging a couple bucks on his gas prices, but there's no penalty for the drug company that price gouged thousands on a life-saving drug? Makes no sense. #hcldr |
| Kentucky #insulin4all @KYinsulin4all @Colin_Hung @researchmatters Yes! We are a group trying to get a collective voice in the tri-state KY OH IN area. We joined our voices because there is power in numbers. @t1international has been instrumental in guiding us in our advocacy #Insulin4all #hcldr |
| Jamie Roger @JamieRoger8 @kiwifreund Thank you #hcldr |
| Michael Sinha @DrSinhaEsq Brand new from my colleagues @PORTAL_Research: Strategies to improve the affordability of insulin in the USA #hcldr https://t.co/s4gN8EbqRp via @TheLancetEndo |
| Heather McCullen @H_SalemOaks T3: Getting rid of the word "access", I have ACCESS to a Ferrari 488, that doesn't mean I can get one. #hcldr |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet RT @JoeBabaian: Exactly! Mike drop. We need direction not always the same exact path. Together, now, here. Well said @Colin_Hung - no wonder we are friends :) #hcldr https://t.co/F76GfUD6QY |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @lauradianeappel: @MedEdUnicorn @jamesian @JoeBabaian @MTL613 @danmunro @Walmart @amazon I believe (check me on this) that #Medicare is not allowed to do drug price negotiation. Maybe through Part C managed care plans. #hcldr |
| Susan Woolner, CPXP @susanwoolner @danmunro @BernieSanders Purdue University is an accompiice as well. #hcldr |
| Janae Sharp @CoherenceMed This is a great question. #HCLDR I am not sure. https://t.co/fKu6xdItG6 |
| Nirav J. Modi @NiravJModi @Colin_Hung Agree. Transparency enables many downstream positive behaviors. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @spdustin: @hcldr T2: @hcldr T2: 1) Drug and genomic patents. The former survives longer than needed to help pharma companies recoup R&D costs; the latter practically ensures monopolies on gene therapy. 2)Transparency in actual costs (inc. R&D) vs retail price. #hcldr |
| Amanda G @LAlupusLady A3 Making accessible/affordable treatment and medication for all (esp. the underserved rural/urban populations) a priority. #hcldr https://t.co/82Lq1iz4wU |
| Susan Woolner, CPXP @susanwoolner RT @Colin_Hung: @researchmatters It can be, but do we need complete alignment or to just enough people need to get motivated and move the needle together? I believe that if we can get enough people pulling on the rope we can make a small difference. Enough people and enough ropes, then real change happens #hcldr |
| Jamie Martin @DavisJamie77 RT @EMRAnswers: T2: |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @H_SalemOaks: T3: T3: Getting rid of the word "access", I have ACCESS to a Ferrari 488, that doesn't mean I can get one. #hcldr |
| Dr. Victoria Dooley @DrDooleyMD I think โฌ๏ธ shows my stance on T3 #hcldr https://t.co/ZrXlJGV2Wp |
 | Angela Lautner #insulin4all @ARLinsulin4all @hcldr T3: I am not sure we will ever have improved healthcare coverage/access without transparency first. We canโt improve coverage/care when the price to produce some drugs necessary for life and care is purposefully hidden #insulin4all #hcldr |
| Dr. Victoria Dooley @DrDooleyMD RT @drlfarrell: |
| Bingle @TheBingle @LAlupusLady @Colin_Hung @jamesian @JoeBabaian @MTL613 @danmunro @Walmart @amazon T2 There's too much money to be made. In a Real Patients Included World your effective working treatment would be more than welcomed. #hcldr |
| Chelsea Friend @kiwifreund T3: In the words of Queen, "I want it all." #hcldr |
| Jamie Roger @JamieRoger8 @DrDooleyMD @MelindaMWedding That is downright terrifying. #blackmarketinsulin #insulin4all #hcldr |
| Colin Hung @Colin_Hung @drnic1 T3 It's so tricky isn't it Nick. Pharma should recoup costs and make a profit. I think the problem is outsized profits or using a handful of drugs to mask failed bets. You wouldn't invest in a financial institution that was making money on just 1 stock would you? #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 @MariahWrites I donโt believe most people grin or accept this #hcldr |
 | taking tickets at the theme park of the damned @thebkwyrm RT @NathanGrunewald: T1: T1: It is not a specialty drug that should be limited. Insulin IMO is a right, not a privilege. Decades ago we said dialysis is a right. #hcldr Insulin in America: A Right or a Privilege?: https://t.co/rgR8ccVzk7 |
| HealthSparq @HealthSparq RT @hcldr: Time for T3: Where should our most urgent focus be: Time for T3: Where should our most urgent focus be: medication access, improved healthcare coverage/access, pricing transparency, or? #hcldr https://t.co/cfDf0GQ8Ll |
| Sarah Greene @researchmatters @JoeBabaian @Colin_Hung Thank you both for endeavoring to pull me out of my cynical doldrums. In 2018, stories like โ$50 or dieโ Should. Not. Hapoen. I cling to optimism because of the #hcldr community. |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba T3 Insurance reform!!!! Pay attention friends. Increases in OOP costs, such as deductibles, & higher specialty pharmacy tiers, have outpaced premium increases, a result of tactics used by health plans and their pharmacy benefit managers. #hcldr https://t.co/07pM4fmokI |
| Enlightening Results ๐ก @GraceCordovano T3) Focus should be removing as many barriers & points of friction. 3D printing a functional pancreas may be easier than working through this mess. #hcldr |
| Rachel Lewin @MedEdUnicorn @susanwoolner Oh, yes, I donโt doubt at all that everyone attending this chat and probably all #hcldr and #pinksocks and #Insulin4All folk agree! Iโm just saying that ideological disagreements are a significant hurdle |
| Susan Woolner, CPXP @susanwoolner I have never understood this stupid policy and I wonder whether there are economic triggers in place now that could erase this stupid rule. #hcldr https://t.co/d2n0COmS2h |
| Joe Babaian ๐บ๐ฆ @JoeBabaian The mitigating factor - not grinning, but suffering silently, feeds from the #SDoH that remove folk's voices, limits power, destroys self-esteem to SHOUT. #hcldr https://t.co/Zyv0Is1DYi |
| Colin Hung @Colin_Hung @researchmatters @JoeBabaian I cling to optimism because the alternative sucks ;) #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @kiwifreund: T3: T3: In the words of Queen, "I want it all." #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @researchmatters: @JoeBabaian @Colin_Hung Thank you both for endeavoring to pull me out of my cynical doldrums. In 2018, stories like โ$50 or dieโ Should. Not. Hapoen. I cling to optimism because of the #hcldr community. |
| Mariah Obiedzinski @MariahWrites T3: Access and #prevention of #type2diabetes. Access and coverage for people with type 1. Then flush out more rats like Shkreli through price transparency. There's a difference between profits and poaching! #hcldr |
| Jamie Roger @JamieRoger8 RT @RBlount: I love this. If weโre going to address the root to most of our healthcare problems it starts with #HEALTH #hcldr https://t.co/f8HgoCiCV4 |
| Rachel Lewin @MedEdUnicorn @lauradianeappel @jamesian @JoeBabaian @MTL613 @danmunro @Walmart @amazon I 100% defer to your knowledge โฌ๏ธ #hcldr |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO #hcldr https://t.co/XUY2HbTZB7 |
| Sally James @jamesian RT @H_SalemOaks: T3: T3: Getting rid of the word "access", I have ACCESS to a Ferrari 488, that doesn't mean I can get one. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @hcldr: Time for T3: Where should our most urgent focus be: Time for T3: Where should our most urgent focus be: medication access, improved healthcare coverage/access, pricing transparency, or? #hcldr https://t.co/cfDf0GQ8Ll |
| Camea @Kamiyamay T3. All of the above. One cannot work without the other. A visit is not obtained without covereage. Meds are not obtained without a visit. Meds are no good if they cannot be afforded or accesses. Perverbial Merry go round. #hcldr |
| ElizabethKelly, Ph.D @Elizabe85727641 T3 The strategy needs multi-focus for each task. Like a juggler it is important to keep all 3 balls in the air to show what collaboration/cooperation look like. Do not allow distraction or conquer & divide by the special interests/goals. #hcldr |
| Jamie Martin @DavisJamie77 T3: I think it will take a combination of all those factors. This is a problem perpetuated by many and at many levels. No single silver bullet can fix the mess that's been made. #hcldr |
| Erin Moriarty Wade @EMoriartyWade @hcldr T3 Access to affordable meds *specifically* for those in need. Not all diabetics need help. My dad is Type 2 diabetic and pays $75 a month for insulin through Medicare supplemental insurance and lives comfortably. But he said it would cost $2300/month if he had to pay cash!#hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @researchmatters @Colin_Hung You just made it all worthwhile my friend :) #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @NiravJModi: @Colin_Hung Agree. Transparency enables many downstream positive behaviors. #hcldr |
| Pat Rich @pat_health @JoeBabaian @Colin_Hung @MTL613 @danmunro So you are saying that @Colin_Hung is not a twitter bot? #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @EMoriartyWade: @hcldr T3 Access to affordable meds *specifically* for those in need. Not all diabetics need help. My dad is Type 2 diabetic and pays $75 a month for insulin through Medicare supplemental insurance and lives comfortably. But he said it would cost $2300/month if he had to pay cash!#hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @DavisJamie77: T3: T3: I think it will take a combination of all those factors. This is a problem perpetuated by many and at many levels. No single silver bullet can fix the mess that's been made. #hcldr |
| Heather McCullen @H_SalemOaks @nicki21n @MelindaMWedding @EMoriartyWade @hcldr Oh definitely. My point wasn't that people SHOULD switch to it, but if it can be OTC better insulins could be too with a little effort. #hcldr |
| Rachel Lewin @MedEdUnicorn RT @JoeBabaian: The mitigating factor - not grinning, but suffering silently, feeds from the #SDoH that remove folk's voices, limits power, destroys self-esteem to SHOUT. #hcldr https://t.co/Zyv0Is1DYi |
| Mariah Obiedzinski @MariahWrites @JoeBabaian Well said, @JoeBabaian #hcldr |
 | KIBSOL.com | Solutions for Business Growth Future @KibSolFuture RT @drnic1: T3 But to be fair to #pharma the cost of development and #innovation is high given the low rate of return adn success in drug development - without a return there will be no ongoing and future Drug Development for #diabetes or any other disease #hcldr https://t.co/VIyYR75en6 |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @Kamiyamay: T3. All of the above. One cannot work without the other. A visit is not obtained without covereage. Meds are not obtained without a visit. Meds are no good if they cannot be afforded or accesses. Perverbial Merry go round. #hcldr |
| Michael Sinha @DrSinhaEsq See this from my colleagues @PORTAL_Research: Strategies to improve the affordability of insulin in the USA #hcldr https://t.co/InzWgLjnAU via @TheLancetEndo |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @MariahWrites: T3: T3: Access and #prevention of #type2diabetes. Access and coverage for people with type 1. Then flush out more rats like Shkreli through price transparency. There's a difference between profits and poaching! #hcldr |
| Enlightening Results ๐ก @GraceCordovano RT @JoeBabaian: The mitigating factor - not grinning, but suffering silently, feeds from the #SDoH that remove folk's voices, limits power, destroys self-esteem to SHOUT. #hcldr https://t.co/Zyv0Is1DYi |
| Bob @RBlount RT @drnic1: T3 Solutions do not lie in access or coverage but rather in price transparency that relates this to the actual cost of development, production and #innovation for development of #diabetes treatments #hcldr https://t.co/30rZnKjleX |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @Colin_Hung: @researchmatters @JoeBabaian I cling to optimism because the alternative sucks ;) #hcldr |
| Chelsea Friend @kiwifreund @susanwoolner So how do you really feel about it? #hcldr |
| Dr. Victoria Dooley @DrDooleyMD RT @DavisJamie77: @DrDooleyMD I think having doctors like you who are willing to educate patients about RX options is a major plus. Thank you for doing that! I wish there were more like you - bc you're right, sometimes patients just don't know what options they have. #hcldr |
| Jamie Roger @JamieRoger8 RT @DavisJamie77: @DrDooleyMD I think having doctors like you who are willing to educate patients about RX options is a major plus. Thank you for doing that! I wish there were more like you - bc you're right, sometimes patients just don't know what options they have. #hcldr |
 | Heidi Grabenstatter @PatientIntv @Elizabe85727641 @MarkMilliganDPT @RBlount I love the idea of the measuring the number of good days in complex diseases in lieu of or to complement current metrics. #hcldr |
| Mariah Obiedzinski @MariahWrites @natarpr @JoeBabaian @danmunro Thank you. #hcldr |
| Lisa Davis Budzinski @lisadbudzinski @Colin_Hung @drnic1 I e always wondered why itโs not considered or fall under the law of โprice gougingโ in the USA? ๐ค #hcldr |
| Amanda G @LAlupusLady @MTL613 apologies for the misunderstanding, was not referring to diabetics for many with fibro, arthritis and other pain conditions PT would be a better/cost effective treatment option #hcldr |
| Bingle @TheBingle @drnic1 T3 To be very, very fair..... Look at Monies given to NIH, CDC, Others.... from patien... Oops, I mean taxpayers. #hcldr |
| Colin Hung @Colin_Hung @NiravJModi T3 It is the balancing factor. I have no problem paying a high price if what I'm getting is valuable and I can see it cost a lot to make (ie: whiskey) but without that insight there is too much incentive to play bad games with pricing & efficacy #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T3: Not of this matters if we don't suffer from disease. Prevention is most important. However, since we all get sick, we need realistic, accessible, affordable care across the entire care continuum. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @NiravJModi @Colin_Hung We were just talking today at #LHSCollaboratory about need for #SDOH interventions to make upstream solutions viable & sustainable #hcldr |
 | OpenNotes @myopennotes The team at @KPWestLA is gearing up for #OpenNotes! We made 10 presentations in 8 hours, talked with primary care, internal medicine, OB/GYN, surgery, pediatrics, and tons of sub-specialties. Big thanks to @GregDSacconeMD & Dr. Brittaney Belyeu for leading the effort! #hcldr https://t.co/wmEeQ426ac |
| Susan Woolner, CPXP @susanwoolner @Colin_Hung @MTL613 @mattbmartin I am having the same lag affect happen to me #hcldr |
| Mariam Jacob @MariamSJacob @hcldr T3 All of the above plus increased investment in health technology innovations so that entrepreneurs/scientists are compensated fairly and patients have access to drugs with affordable prices. #hcldr #Insulin4all |
| Laura Appel @lauradianeappel @MarkMilliganDPT @Elizabe85727641 @RBlount Completely agree, but will still have people with the bad luck of Type 1 diabetes, cystic fibrosis, cancers, heart disease. Problems of cost and access continue, even if the volume declines dramatically. #hcldr |
| Mariah Obiedzinski @MariahWrites @drnic1 Perhaps not grin, but definitely no choice but to bear it. That's the sick part. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MariahWrites Thank you and to you as well - I love how we find the truths, together. #hcldr |
| Colin Hung @Colin_Hung @lisadbudzinski @drnic1 T3 So hard to prove so I wonder if people just give up and try to find ways around the system #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @Colin_Hung: @NiravJModi T3 It is the balancing factor. I have no problem paying a high price if what I'm getting is valuable and I can see it cost a lot to make (ie: whiskey) but without that insight there is too much incentive to play bad games with pricing & efficacy #hcldr |
| Enlightening Results ๐ก @GraceCordovano T3: Curious, are there payers that support & reimburse medical tourism when the difference in cost is astounding? #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @MariamSJacob: @hcldr T3 All of the above plus increased investment in health technology innovations so that entrepreneurs/scientists are compensated fairly and patients have access to drugs with affordable prices. #hcldr #Insulin4all |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @NathanGrunewald: T3: T3: Not of this matters if we don't suffer from disease. Prevention is most important. However, since we all get sick, we need realistic, accessible, affordable care across the entire care continuum. #hcldr |
| Colin Hung @Colin_Hung RT @PatientIntv: @Elizabe85727641 @MarkMilliganDPT @RBlount I love the idea of the measuring the number of good days in complex diseases in lieu of or to complement current metrics. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @JoeBabaian: @MariahWrites Thank you and to you as well - I love how we find the truths, together. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @LAlupusLady: @MTL613 apologies for the misunderstanding, was not referring to diabetics for many with fibro, arthritis and other pain conditions PT would be a better/cost effective treatment option #hcldr |
| Sally James @jamesian RT @Kamiyamay: T3. All of the above. One cannot work without the other. A visit is not obtained without covereage. Meds are not obtained without a visit. Meds are no good if they cannot be afforded or accesses. Perverbial Merry go round. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @susanwoolner: I have never understood this stupid policy and I wonder whether there are economic triggers in place now that could erase this stupid rule. #hcldr https://t.co/d2n0COmS2h |
| Enlightening Results ๐ก @GraceCordovano @myopennotes @KPWestLA @GregDSacconeMD @TheLizArmy Incredible! #GSD #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @Elizabe85727641: T2 Major barrier is federal government who do not allow Medicare/Medicaid to negotiate Rx prices. This group have limited voice, a few organizations try to advocate for them (AARP) who are also associated with health insurance companies.#hcldr |
| Jamie Martin @DavisJamie77 RT @EMRAnswers: @hcldr T3: |
| Susan Woolner, CPXP @susanwoolner @JamieRoger8 This is a great description of what I see and hear from patients and caregivers. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @GraceCordovano: T3: T3: Curious, are there payers that support & reimburse medical tourism when the difference in cost is astounding? #hcldr |
| Enlightening Results ๐ก @GraceCordovano @natarpr @Kamiyamay Bingo! #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba T3 But the genius is, insurers sell this to us as a cost-saving measure. And patients flock to these plans. Plans also lobby against states allowing #DirectPrimaryCare as an insurance model #hcldr https://t.co/uTDuurptkV |
| Mark Milligan @MarkMilliganDPT RT @RBlount: I love this. If weโre going to address the root to most of our healthcare problems it starts with #HEALTH #hcldr https://t.co/f8HgoCiCV4 |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @susanwoolner @Colin_Hung @MTL613 @mattbmartin It's flooding Twitter. I am lucky to be on a backbone here in #Houston - but it Twitter has its limits sadly. Transcript awaits! :) #hcldr |
| Rachel Lewin @MedEdUnicorn @Colin_Hung @NiravJModi But also in healthcare many donโt have the ability to pay moreโshould they receive less good treatments/less treatment just because they have fewer resources at their disposal? I feel like this is where healthcare as business breaks down #hcldr |
| Mariah Obiedzinski @MariahWrites RT @MariamSJacob: @hcldr T3 All of the above plus increased investment in health technology innovations so that entrepreneurs/scientists are compensated fairly and patients have access to drugs with affordable prices. #hcldr #Insulin4all |
| Kentucky #insulin4all @KYinsulin4all RT @chickiepilot: @hcldr T3: @hcldr T3: I am not sure we will ever have improved healthcare coverage/access without transparency first. We canโt improve coverage/care when the price to produce some drugs necessary for life and care is purposefully hidden #insulin4all #hcldr |
| Colin Hung @Colin_Hung @pat_health @JoeBabaian @MTL613 @danmunro Wait can you repeat that, my algorithm didn't catch it. #hcldr ;) Hope you are doing well my friend! |
| Bingle @TheBingle @EMRAnswers @MarkMilliganDPT @hcldr How True. #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @KOIInsulin4All: Hello! We are volunteer #Insulin4All advocates working to get pricing transparency legislation in Kentucky, Ohio, and Indiana. We would appreciate any retweets and follows. #hcldr |
| โDustin Millerโ @spdustin @hcldr T3: Pricing transparency is a prerequisite to the first two. Why does Respiclick cost $67 unless someone has the means to discover the manufacturer's special $25 pricing? What percentage of patients pay what price for medications? #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson One of the topicsbrought up at #LHSCollaboratory was that saving money for payers doesnโt equal savings for patients or care providers #hcldr |
 | Mike Mackert @mackert If you're interested in #healthcomm and leadership, you should join @uthealthcomm HCLI this summer! The agenda is our best yet: https://t.co/8gvtvVN8Do #hcldr @texmed @texashospitals @Health4Texas @CentralHealthTX @OneVoiceCtrlTX @texasyoungpros @TXPHA https://t.co/UXu3ojQhaw |
| Heidi Grabenstatter @PatientIntv @LAlupusLady @Colin_Hung @jamesian @JoeBabaian @MTL613 @danmunro @Walmart @amazon Starts when we ask what outcome measures matter most to patients and caregivers, would lead to development of products and services that addressed those endpoints. #hcldr |
| Mark Milligan @MarkMilliganDPT @PatientIntv @Elizabe85727641 @RBlount So many way to look at how people are doing and living even with complex diseases. Love this!! #hcldr |
| Heather McCullen @H_SalemOaks @paul_griffiths I'm not sure I follow. #hcldr |
| Jamie Martin @DavisJamie77 RT @GraceCordovano: T3: T3: Curious, are there payers that support & reimburse medical tourism when the difference in cost is astounding? #hcldr |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet @Colin_Hung @drnic1 Call me naive butโฆ I fundamentally feel healthcare and related researches cannot be for profit. It has be because you feel awesome to help someone (w. small profit ;)!! #hcldr |
| Jamie Roger @JamieRoger8 @JoeBabaian The fear of #sharing your #patientstory is terrifying. When our voices and experiences are taken away or devalued, the fear of sharing again is real. WE need to #support each other and show that #sufferingsilently is not a feasible option #hcldr |
| Lisa Davis Budzinski @lisadbudzinski @Colin_Hung @drnic1 It seems no different than when a hurricane is coming to Florida and prices go up on all preparedness items like plywood #hcldr |
| Bob @RBlount T3: The hard truth. #hcldr https://t.co/3WOVGl5XIR |
| Susan Woolner, CPXP @susanwoolner I love this idea Sarah. #hcldr https://t.co/xmFU7eOSdz |
| Jamie Roger @JamieRoger8 @susanwoolner Thank you! #hcldr |
| Pat Rich @pat_health T3 How about #sdoh and then access to things that are needed to keep people alive #hcldr |
 | mElon Husk @jia_ba RT @Kidfears99: Iโve been fighting for #insulin4all since 2012, when the owner of the law firm where I was practicing died suddenly and I became โuninsurable.โ I paid $2,880 a month for the healthcare I need to stay alive, the largest portion of which was insulin. #hcldr |
| Erin Moriarty Wade @EMoriartyWade @hcldr T3 Instead of focusing only on the cost/supply side, focus on reducing *demand* for insulin! I wrote about many Type 2 diabetics who reduced or eliminated their need for insulin with diet/lifestyle changes. #hcldr https://t.co/h616EC3VMy |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MTL613 @LAlupusLady Actually we welcome the wide view - no worries. Not just about insulin, this about medication access in the wide view also :) Glad to have the open dialog! #hcldr |
| Laura Appel @lauradianeappel Read @aaronecarroll about changing participating labs, pharmacies for his chronic disease. A doc with benefit from a Big 10 university has trouble keeping prescription filled. #hcldr https://t.co/kiEq49ueTw |
| Sarah Greene @researchmatters So brilliant, especially in contrast to the convoluted over-supply of measures we deal with in#healthcare everyday. #hcldr #measurewhatmatters @QualityForum https://t.co/iMVp9iKgOo |
| Jamie Martin @DavisJamie77 RT @JamieRoger8: @JoeBabaian The fear of #sharing your #patientstory is terrifying. When our voices and experiences are taken away or devalued, the fear of sharing again is real. WE need to #support each other and show that #sufferingsilently is not a feasible option #hcldr |
| Bingle @TheBingle @H_SalemOaks @susanwoolner Insurance is a whole other animal ..... sadly also growling & attacking the patient. #hcldr |
| Amanda G @LAlupusLady RT @JoeBabaian: @MTL613 @LAlupusLady Actually we welcome the wide view - no worries. Not just about insulin, this about medication access in the wide view also :) Glad to have the open dialog! #hcldr |
| โDustin Millerโ @spdustin RT @spdustin: @hcldr T3: @hcldr T3: Pricing transparency is a prerequisite to the first two. Why does Respiclick cost $67 unless someone has the means to discover the manufacturer's special $25 pricing? What percentage of patients pay what price for medications? #hcldr |
| Heather McCullen @H_SalemOaks @EMoriartyWade @hcldr This literally isn't an option for many people. #hcldr |
| Pat Rich @pat_health @Colin_Hung @JoeBabaian @MTL613 @danmunro Good (midway between Kingston and the swamps of Eastern Ontario on a train right now which is why I am behind of the chat answers) #hcldr |
| Rachel Lewin @MedEdUnicorn RT @pfanderson: One of the topicsbrought up at #LHSCollaboratory was that saving money for payers doesnโt equal savings for patients or care providers #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @LAlupusLady @MTL613 No worries Amanda! We are talking about drug access including insulin and other therapies for other conditions as well! Your point, as always, is well taken my friend! :) #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @EMoriartyWade @hcldr Pondering. If we actually reduced the need for insulin due to prevention of diabetes, ... would that mean they'd raise the price more to cover the difference? #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @LAlupusLady: @MTL613 apologies for the misunderstanding, was not referring to diabetics for many with fibro, arthritis and other pain conditions PT would be a better/cost effective treatment option #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @JamieRoger8: @JoeBabaian The fear of #sharing your #patientstory is terrifying. When our voices and experiences are taken away or devalued, the fear of sharing again is real. WE need to #support each other and show that #sufferingsilently is not a feasible option #hcldr |
| Susan Woolner, CPXP @susanwoolner T3: pricing transparency and improved healthcare coverage/access to start with #hcldr https://t.co/nkEDcPCVvt |
| Bob @RBlount T3: That clearly creates issues for many - access complexity. #hcldr https://t.co/0EVVC468t5 |
| Sarah Greene @researchmatters @susanwoolner I would love it better w/o typos #hcldr #thanks |
| HCLDR Moderator @hcldr RT @JoeBabaian: @MTL613 @LAlupusLady Actually we welcome the wide view - no worries. Not just about insulin, this about medication access in the wide view also :) Glad to have the open dialog! #hcldr |
| HCLDR Moderator @hcldr Just 1 minute until T4! #hcldr |
| Mariah Obiedzinski @MariahWrites @lisadbudzinski @Colin_Hung @drnic1 Disgusting. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @drnic1: T3 Solutions do not lie in access or coverage but rather in price transparency that relates this to the actual cost of development, production and #innovation for development of #diabetes treatments #hcldr https://t.co/30rZnKjleX |
| Mark Milligan @MarkMilliganDPT @lauradianeappel @Elizabe85727641 @RBlount Could not agree more. I think shifting the needle on our population could help with the prevalence of other conditions. Some people will have health care issues and we need to support all. #HCLDR |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @Colin_Hung: @drnic1 T3 In Canada there is a law that gas stations have to disclose exactly where the cost of gas goes. ie: @drnic1 T3 In Canada there is a law that gas stations have to disclose exactly where the cost of gas goes. ie: X to refinery, Y to taxes, Z to transportation company, etc. We have it for GAS but not for drugs which cost WAAAAY more #hcldr |
| Lisa Davis Budzinski @lisadbudzinski @JoeBabaian @MTL613 @LAlupusLady Thank you Joeโจ Drug prices are outrages for many different areas of health #hcldr |
| Colin Hung @Colin_Hung @MTL613 @TheBingle @LAlupusLady @jamesian @JoeBabaian @danmunro @Walmart @amazon It's always been puzzling to me why there are so many BRANDS of insulin. Oh and I think the statement was made not in reference to insulin but to all drugs that treat specific diseases #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @MTL613 @LAlupusLady It still counts, though, as an example of how the problems with #insulin4all can be models for what could happen in other conditions. That was part of the conversations leading to today's chat #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @spdustin: @hcldr T3: @hcldr T3: Pricing transparency is a prerequisite to the first two. Why does Respiclick cost $67 unless someone has the means to discover the manufacturer's special $25 pricing? What percentage of patients pay what price for medications? #hcldr |
| Laura Appel @lauradianeappel @NathanGrunewald By if we could avoid the avoidable illness we would have immense resources for the rest of our needs. Preserving the health we have is so key. #hcldr |
| HCLDR Moderator @hcldr Time for T4: What action steps should we all be taking right now to get change moving vs just more โtalkโ about the problem? #hcldr https://t.co/VT4uSSy8kD |
| Michael Sinha @DrSinhaEsq A3 #hcldr Other: market entry of affordable generics. Luo et al. @PORTAL_Research article explains it well (see above for link). We are paying high prices for incremental innovation when the drug's discoverers wanted to ensure universal access and #insulin4all https://t.co/OW66wk40sN |
| Rachel Lewin @MedEdUnicorn RT @lauradianeappel: Read @aaronecarroll about changing participating labs, pharmacies for his chronic disease. A doc with benefit from a Big 10 university has trouble keeping prescription filled. #hcldr https://t.co/kiEq49ueTw |
| Heidi Grabenstatter @PatientIntv @researchmatters @QualityForum Listen to the parents of children with rare diseases, multi-system involvement. Drugs improve one outcome, but don't touch others. Their greatest wish is for countable "good days" for their child. #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 T4 @SecAzar: Tear down those walls on pricing for Insulin Rx for #Diabetes and expose the disparity of pricing that is harming American Patients #hcldr https://t.co/Wap0VRSC3c |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @lisadbudzinski @MTL613 @LAlupusLady By far! Too many people dying - slowly and quick - without access to medicines that should be - must be - within reach. #SDoH #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @lisadbudzinski: @JoeBabaian @MTL613 @LAlupusLady Thank you Joeโจ Drug prices are outrages for many different areas of health #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 Contextual to #hcldr this evening and diabetes Rx https://t.co/kZsDQdTXEU |
| Mariah Obiedzinski @MariahWrites @researchmatters @susanwoolner Typos means you're human, not a chatbot :-) #hcldr |
| Sally James @jamesian @drlfarrell There is a yawning gap in #healthliteracy and understanding that plays to the #commercial advertisers who exploit msgs #hcldr Context is everything. #scicomm |
| Erin Moriarty Wade @EMoriartyWade @H_SalemOaks @hcldr The DPP program is amazing and very do-able at the community level. It worked in rural Georgia in communities without much income or prior knowledge about anything like this. #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 RT @lauradianeappel: Read @aaronecarroll about changing participating labs, pharmacies for his chronic disease. A doc with benefit from a Big 10 university has trouble keeping prescription filled. #hcldr https://t.co/kiEq49ueTw |
| Bob @RBlount RT @PatientIntv: @Elizabe85727641 @MarkMilliganDPT @RBlount I love the idea of the measuring the number of good days in complex diseases in lieu of or to complement current metrics. #hcldr |
| Jamie Roger @JamieRoger8 @spdustin @hcldr When people are paying #outofpocket it shouldn't be able finding the #loophole, if a lower price is somehow offered, everyone should just be charged that lower price #hcldr #Ridiculous #CAREaboutHealth |
| Nirav J. Modi @NiravJModi @MedEdUnicorn @Colin_Hung Yes, I should clarify. Downstream could mean patient behavior as well as market dynamics/competition etc. Information os an enabler across multiple dimensions. #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @drnic1 R&D costs are high but the break even point is realized sooner, and the ROI+ is greater than 1000% in some cases. Most studies to the contrary are paid for by #pharma but not necc. disclosed. #hcldr |
| Heather McCullen @H_SalemOaks @Colin_Hung @MTL613 @TheBingle @LAlupusLady @jamesian @JoeBabaian @danmunro @Walmart @amazon What part is puzzling? This could be an entirely separate chat. #dsma #hcldr |
| Amanda G @LAlupusLady RT @JoeBabaian: @lisadbudzinski @MTL613 @LAlupusLady By far! Too many people dying - slowly and quick - without access to medicines that should be - must be - within reach. #SDoH #hcldr |
| Pat Rich @pat_health @paul_griffiths Are we allowed to use words like โobfuscatedโ in this chat? #hcldr |
| Bingle @TheBingle @Colin_Hung @EMoriartyWade @hcldr Kinda like a spaceship out of control in the Twilight Zone........ and sometimes the patient doesn't come back #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @Colin_Hung @MTL613 @TheBingle @LAlupusLady @jamesian @danmunro @Walmart @amazon Not puzzling when small tweaks are used as justifications that wouldn't hold up in the light of day....eh? #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 So true ....for so many drugs #hcldr https://t.co/Oo8BrhYNb1 |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @Colin_Hung: @MTL613 @TheBingle @LAlupusLady @jamesian @JoeBabaian @danmunro @Walmart @amazon It's always been puzzling to me why there are so many BRANDS of insulin. Oh and I think the statement was made not in reference to insulin but to all drugs that treat specific diseases #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 RT @drlfarrell: |
| PF Anderson @pfanderson@disabled.social @pfanderson @MTL613 Bravo. Well said. We need a multipronged approach โprevention, improved management, improved human & social services, but ALWAYS first, the foundational requirements to preserve lives #insulin4all #hcldr |
| Colin Hung @Colin_Hung @DrDooleyMD @MelindaMWedding Okay that's about the most terrible thing I've heard tonight. This is really a thing now?!! Stealing medications! #hcldr |
| Camea @Kamiyamay RT @drnic1: T4 @SecAzar: T4 @SecAzar: Tear down those walls on pricing for Insulin Rx for #Diabetes and expose the disparity of pricing that is harming American Patients #hcldr https://t.co/Wap0VRSC3c |
| Jamie Roger @JamieRoger8 RT @TheBingle: @H_SalemOaks @susanwoolner Insurance is a whole other animal ..... sadly also growling & attacking the patient. #hcldr |
| Chelsea Friend @kiwifreund Plus some of us were born with our diseases, so "prevention" in our cases would have been solely focused on preventing us from being born, so...yeah. Next stop: realism. Healthcare for all. #hcldr https://t.co/ZiJusn9Iu7 |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet @drnic1 Yes, that is pharma's STANDARD line but how much profit do they need?? #hcldr |
| Mariah Obiedzinski @MariahWrites RT @drnic1: Contextual to #hcldr this evening and diabetes Rx https://t.co/kZsDQdTXEU |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @DrDooleyMD @MelindaMWedding Agree with @Colin_Hung - this is bridge too far. Symptom for sure. #hcldr |
| Erin Moriarty Wade @EMoriartyWade @pfanderson @hcldr Possibly...but the patients I interviewed who got off metformin and/or insulin completely would probably say itโs worth the effort. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson Hoping that @joyclee can visit for tonight's #hcldr chat on #insulin4all |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @Colin_Hung: @DrDooleyMD @MelindaMWedding Okay that's about the most terrible thing I've heard tonight. This is really a thing now?!! Stealing medications! #hcldr |
| Colin Hung @Colin_Hung @H_SalemOaks @MTL613 @TheBingle @LAlupusLady @jamesian @JoeBabaian @danmunro @Walmart @amazon Clearly I need to learn more about what the different brands do. #hcldr |
| Rachel Lewin @MedEdUnicorn @EMoriartyWade @H_SalemOaks @hcldr Right but type 1 diabetics canโt physiologically produce insulinโwithout it they will die. So this issue needs to consider that we will not change their need for insulin until we cure diabetes #hcldr |
| Jamie Roger @JamieRoger8 Can't wait to hear everyone's input on this! #hcldr https://t.co/6vk3Dd4JJf |
| Bob @RBlount RT @drnic1: T4 @SecAzar: T4 @SecAzar: Tear down those walls on pricing for Insulin Rx for #Diabetes and expose the disparity of pricing that is harming American Patients #hcldr https://t.co/Wap0VRSC3c |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @kiwifreund: Plus some of us were born with our diseases, so "prevention" in our cases would have been solely focused on preventing us from being born, so...yeah. Next stop: realism. Healthcare for all. #hcldr https://t.co/ZiJusn9Iu7 |
| Sally James @jamesian @JoeBabaian @Colin_Hung @MTL613 @TheBingle @LAlupusLady @danmunro @Walmart @amazon Anybody want to enter the rabbit hole of #noninferiority trials? https://t.co/xcSzeZc1Oo How to prove tweaks are not important? #hcldr |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet RT @ShereesePubHlth: @drnic1 R&D costs are high but the break even point is realized sooner, and the ROI+ is greater than 1000% in some cases. Most studies to the contrary are paid for by #pharma but not necc. disclosed. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @DrDooleyMD: @MelindaMWedding I had one patient who had to get a P.O. Box b/c his insulin would be stolen from his home. ๐ข๐ก #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @Colin_Hung @H_SalemOaks @MTL613 @TheBingle @LAlupusLady @jamesian @danmunro @Walmart @amazon Oh, I am sure the differences are NOT Earth-shattering (sarcasm off). But yea. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @Colin_Hung: @DrDooleyMD @MelindaMWedding Okay that's about the most terrible thing I've heard tonight. This is really a thing now?!! Stealing medications! #hcldr |
| Enlightening Results ๐ก @GraceCordovano T4: What drives the decision to provide a drug, such as Naloxone(Narcan) free of charge vs insulin? These are real discussions that need to be taking place. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @JamieRoger8: Can't wait to hear everyone's input on this! #hcldr https://t.co/6vk3Dd4JJf |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @JamieRoger8 Yours too! :) #hcldr |
| Bob @RBlount RT @drnic1: So true ....for so many drugs #hcldr https://t.co/Oo8BrhYNb1 |
| Colin Hung @Colin_Hung @drlfarrell Have a good night Liam! #hcldr |
| Jamie Martin @DavisJamie77 T4: What can the average person/patient do? There's no option of boycotting like we might with any other product. Big Pharma owns the policy makers. Doctors are overwhelmed. Leaves a helpless feeling. #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @kkcorbet @drnic1 As my MBA mentor would say, more. They need more. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @EMoriartyWade: @pfanderson @hcldr Possibly...but the patients I interviewed who got off metformin and/or insulin completely would probably say itโs worth the effort. #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @MedEdUnicorn: @EMoriartyWade @H_SalemOaks @hcldr Right but type 1 diabetics canโt physiologically produce insulinโwithout it they will die. So this issue needs to consider that we will not change their need for insulin until we cure diabetes #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @Colin_Hung @DrDooleyMD @MelindaMWedding I knew someone who did that. A postal employee who stole medications he was supposed to deliver. Good for all of us they fired him. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @EMoriartyWade: @hcldr T3 Instead of focusing only on the cost/supply side, focus on reducing *demand* for insulin! I wrote about many Type 2 diabetics who reduced or eliminated their need for insulin with diet/lifestyle changes. #hcldr https://t.co/h616EC3VMy |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @hcldr: Time for T3: Where should our most urgent focus be: Time for T3: Where should our most urgent focus be: medication access, improved healthcare coverage/access, pricing transparency, or? #hcldr https://t.co/cfDf0GQ8Ll |
| Jamie Roger @JamieRoger8 @TheBingle @Colin_Hung @EMoriartyWade @hcldr I totally followed that anaology #keepitreal #hcldr |
| Bingle @TheBingle RT @PatientIntv: @researchmatters @QualityForum Listen to the parents of children with rare diseases, multi-system involvement. Drugs improve one outcome, but don't touch others. Their greatest wish is for countable "good days" for their child. #hcldr |
| Lisa Davis Budzinski @lisadbudzinski RT @JoeBabaian: @lisadbudzinski @MTL613 @LAlupusLady By far! Too many people dying - slowly and quick - without access to medicines that should be - must be - within reach. #SDoH #hcldr |
| Laura Appel @lauradianeappel T3 Work at all angles. Nothing is isolated enough to come first on its own. Complex but necessary. #threedimensionalchess #hcldr https://t.co/z6bqn1Ntqy |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @ShereesePubHlth: @drnic1 R&D costs are high but the break even point is realized sooner, and the ROI+ is greater than 1000% in some cases. Most studies to the contrary are paid for by #pharma but not necc. disclosed. #hcldr |
| Bingle @TheBingle RT @DrSinhaEsq: A3 #hcldr Other: A3 #hcldr Other: market entry of affordable generics. Luo et al. @PORTAL_Research article explains it well (see above for link). We are paying high prices for incremental innovation when the drug's discoverers wanted to ensure universal access and #insulin4all https://t.co/OW66wk40sN |
| Heather McCullen @H_SalemOaks T4: I'm not an expert on it by any means, but there is a lot of state level legislation in process right now. Check out what's going on in your state. Also, don't vote for people who don't believe healthcare is a right #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @GraceCordovano: T4: T4: What drives the decision to provide a drug, such as Naloxone(Narcan) free of charge vs insulin? These are real discussions that need to be taking place. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @lollydaggle @t1international Thank you Hannah! Yes! #insulin4all #hcldr |
| Susan Woolner, CPXP @susanwoolner So accurate Jamie #hcldr https://t.co/ItPulwlzUH |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @jamesian: @JoeBabaian @Colin_Hung @MTL613 @TheBingle @LAlupusLady @danmunro @Walmart @amazon Anybody want to enter the rabbit hole of #noninferiority trials? https://t.co/xcSzeZc1Oo How to prove tweaks are not important? #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @lauradianeappel: T3 Work at all angles. Nothing is isolated enough to come first on its own. Complex but necessary. #threedimensionalchess #hcldr https://t.co/z6bqn1Ntqy |
| Erin Moriarty Wade @EMoriartyWade @MedEdUnicorn @H_SalemOaks @hcldr Yes, I am obviously referring to only Type 2 diabetics since that is not an option for Type 1. #hcldr |
| Mariah Obiedzinski @MariahWrites #Diabetes leads to eye problems, #kidney disease, #heartfailure (the No. 1 killer of women! in the U.S.!), and so many more issues. What more ammo do people need to get vocal? #hcldr https://t.co/3GcExzk8GD |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @JamieRoger8: @TheBingle @Colin_Hung @EMoriartyWade @hcldr I totally followed that anaology #keepitreal #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @DavisJamie77: T4: T4: What can the average person/patient do? There's no option of boycotting like we might with any other product. Big Pharma owns the policy makers. Doctors are overwhelmed. Leaves a helpless feeling. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MedEdUnicorn: @EMoriartyWade @H_SalemOaks @hcldr Right but type 1 diabetics canโt physiologically produce insulinโwithout it they will die. So this issue needs to consider that we will not change their need for insulin until we cure diabetes #hcldr |
| Mariam Jacob @MariamSJacob @hcldr T4 Take a seat at the table. Be an active part of the legislative conversation as laws are being made. #hcldr #Insulin4all |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @GraceCordovano: T4: T4: What drives the decision to provide a drug, such as Naloxone(Narcan) free of charge vs insulin? These are real discussions that need to be taking place. #hcldr |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 @kkcorbet Drug development is not free nor is it cheap under the current regulatory framework #hcldr |
| Amanda G @LAlupusLady A4 If patients asked Drs. is this the only alternative? are there other meds or treatments that could work for me? what is the difference? HCPs need to be asked #patientshavepower (oops wrong chat) #hcldr https://t.co/2XaiBxJpR6 |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @clayforsberg: |
| ElizabethKelly, Ph.D @Elizabe85727641 T4 Get to know health staff of congressional office holders, who are the lobbyist for medical groups & who lobbies on behalf of health interests. Research issues & keep a stream of letters, data, and meetings with these various groups. Speak out!๐ฏ #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @clayforsberg @JamieRoger8 Clay, TY for joining us tonight #hcldr |
| Enlightening Results ๐ก @GraceCordovano @Colin_Hung @DrDooleyMD @MelindaMWedding I know of individuals who search in their communities/network for people who have died of same diagnosis, looking to purchase unused prescriptions from their loved ones. This is happening every day. #hcldr |
| Colin Hung @Colin_Hung @DavisJamie77 T4 Again that's the horrifying quirk about healthcare. You can't boycott and the alternative may not be covered under your plan so you are stuck. In no other aspect of our lives does this consumer/supplier disparity exist for long #hcldr |
| Mariam Jacob @MariamSJacob RT @DavisJamie77: Exactly. Every other product we purchase, we know exactly how much we're paying - except for healthcare. #hcldr https://t.co/D5qipAFpkB |
| Jamie Roger @JamieRoger8 @GraceCordovano AMEN! #healthinsurance charges less for #preventative care than for #emergency care yet we are allowing a medication that is only used in emergencies to be given for free and the preventative med is expensive. #backwardslogic #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @Colin_Hung: @DavisJamie77 T4 Again that's the horrifying quirk about healthcare. You can't boycott and the alternative may not be covered under your plan so you are stuck. In no other aspect of our lives does this consumer/supplier disparity exist for long #hcldr |
| Mariah Obiedzinski @MariahWrites RT @hcldr: Time for T4: Time for T4: What action steps should we all be taking right now to get change moving vs just more โtalkโ about the problem? #hcldr https://t.co/VT4uSSy8kD |
| Bingle @TheBingle @hcldr T4 If possible find exact company cost for products and then see % profit. Perhaps not just insulin but many Rx's #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @DavisJamie77 But they can push for limited patents on drugs. Many don't know that even generic drug patents are owned by big pharma. It's a market-controlling measure. Ex. When the EpiPen patent was due to expire, the company filed patents under 5 additional generic names. #hcldr |
| Heather McCullen @H_SalemOaks @MTL613 Good to have you here though. See you tomorrow when we talk about diabetes and fluffy bunnies (or whatever tomorrow night's topic is) #hcldr #dsma |
| Lisa Davis Budzinski @lisadbudzinski RT @DavisJamie77: T4: T4: What can the average person/patient do? There's no option of boycotting like we might with any other product. Big Pharma owns the policy makers. Doctors are overwhelmed. Leaves a helpless feeling. #hcldr |
 | Gloriaโฎ๏ธ @GloCrne RT @Kidfears99: Hi #hcldr Iโm Laura and Iโve had Type 1 going on 22 years. Iโve used Humalog the entire time. Itโs remained unchanged, except the price has increased over 1200% since my diagnosis at age 14. #insulin4all |
| Lisa Davis Budzinski @lisadbudzinski RT @GraceCordovano: T4: T4: What drives the decision to provide a drug, such as Naloxone(Narcan) free of charge vs insulin? These are real discussions that need to be taking place. #hcldr |
| Gloriaโฎ๏ธ @GloCrne RT @Kidfears99: Iโve been fighting for #insulin4all since 2012, when the owner of the law firm where I was practicing died suddenly and I became โuninsurable.โ I paid $2,880 a month for the healthcare I need to stay alive, the largest portion of which was insulin. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T4: The most important right we have in the USA is to VOTE! Every election matters. Every vote matters. We seen seas change when voters mobilize. #hcldr |
| Jamie Martin @DavisJamie77 RT @EMRAnswers: @hcldr T4: |
| Mariah Obiedzinski @MariahWrites @GraceCordovano @Colin_Hung @DrDooleyMD @MelindaMWedding Heartbroken. #hcldr |
| Colin Hung @Colin_Hung @GraceCordovano @DrDooleyMD @MelindaMWedding T4 WHAT?!!! I am both impressed and outraged at the same time. This is amazing resourcefulness but terrible that people are driven to having to resort to this. #hcldr |
| Gloriaโฎ๏ธ @GloCrne RT @Kidfears99: Iโve made every decision in my life based on whether I would be able to afford insulin. And without insurance, even as a DC attorney, I couldnโt. Thatโs not freedom. #hcldr #insulin4all |
| Joe Babaian ๐บ๐ฆ @JoeBabaian From @Colin_Hung - Must Read: Again that's the horrifying quirk about healthcare. You can't boycott and the alternative may not be covered under your plan so you are stuck. In no other aspect of our lives does this consumer/supplier disparity exist for long #hcldr #insulin4all https://t.co/plXC8vchMn |
| Chelsea Friend @kiwifreund T4: Vote. Talk to your representatives and senators; they make laws, they're due to make more. Talk to your doctors and online support group about immediate (legal) affordable alternatives. #hcldr |
| Susan Woolner, CPXP @susanwoolner @lauradianeappel @aaronecarroll Thanks for pointing me to him. I just followed him and will dig into that story. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @lauradianeappel: Read @aaronecarroll about changing participating labs, pharmacies for his chronic disease. A doc with benefit from a Big 10 university has trouble keeping prescription filled. #hcldr https://t.co/kiEq49ueTw |
| Bingle @TheBingle Definitely. Thanks Joe! #hcldr https://t.co/OIHmLpXs6d |
| Lisa Davis Budzinski @lisadbudzinski RT @jamesian: @JoeBabaian @Colin_Hung @MTL613 @TheBingle @LAlupusLady @danmunro @Walmart @amazon Anybody want to enter the rabbit hole of #noninferiority trials? https://t.co/xcSzeZc1Oo How to prove tweaks are not important? #hcldr |
| Jamie Martin @DavisJamie77 RT @Colin_Hung: @DavisJamie77 T4 Again that's the horrifying quirk about healthcare. You can't boycott and the alternative may not be covered under your plan so you are stuck. In no other aspect of our lives does this consumer/supplier disparity exist for long #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @researchmatters: So brilliant, especially in contrast to the convoluted over-supply of measures we deal with in#healthcare everyday. #hcldr #measurewhatmatters @QualityForum https://t.co/iMVp9iKgOo |
| Rachel Lewin @MedEdUnicorn @MariahWrites I think we havenโt done effective PR on this issue. Think about breast cancerโI bet the pink ribbon pops into your head ASAP. If the average person is going to connect with this, it needs to be catchy and relatable #hcldr |
| Amanda G @LAlupusLady RT @kiwifreund: Plus some of us were born with our diseases, so "prevention" in our cases would have been solely focused on preventing us from being born, so...yeah. Next stop: realism. Healthcare for all. #hcldr https://t.co/ZiJusn9Iu7 |
| Laura Appel @lauradianeappel T4 Recommend focus on the #insulin issue rather than general price transparency. The insulin pricing is relatable, understandable by policymakers, and timing is good. #hcldr https://t.co/I74o2T8U32 |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @susanwoolner @lauradianeappel @aaronecarroll Pretty good stuff, eh Susan?! :) #hcldr |
| Rachel Lewin @MedEdUnicorn RT @LAlupusLady: A4 If patients asked Drs. is this the only alternative? are there other meds or treatments that could work for me? what is the difference? HCPs need to be asked #patientshavepower (oops wrong chat) #hcldr https://t.co/2XaiBxJpR6 |
| Michael Sinha @DrSinhaEsq A4: One idea from Luo et al. -- consider prescribing (much cheaper) human insulin over the newest/latest (and most expensive) insulin pens/devices. #hcldr #insulin4all https://t.co/TCDUPjF1Sb |
| PF Anderson @pfanderson@disabled.social @pfanderson @MTL613 @LAlupusLady I was copied on many messages leading up to the chat. This is an issue of urgent importance for the #insulin4all community, but is an example of famous Neimรถller quote, "First they came for ..." https://t.co/xtWeKFrKNd If we don't all stand up for insulin, we ALL suffer #hcldr |
| Pat Rich @pat_health T4 At a loss. That people in the US even need to have this conversation about diabetes and insulin is unbelievably sad. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @TheBingle: Definitely. Thanks Joe! #hcldr https://t.co/OIHmLpXs6d |
 | Fred Goldstein @fsgoldstein T4 Hammer congress. We need a political movement #hcldr |
| Colin Hung @Colin_Hung @MTL613 Thanks for being here. Appreciate your sincere thoughts and tweets. Clearly insulin and access to it is your passion and area of expertise. #hcldr |
| Bingle @TheBingle RT @Colin_Hung: @MTL613 @TheBingle @LAlupusLady @jamesian @JoeBabaian @danmunro @Walmart @amazon It's always been puzzling to me why there are so many BRANDS of insulin. Oh and I think the statement was made not in reference to insulin but to all drugs that treat specific diseases #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba T4 How Pharma Companies Game the System to Keep Drugs Expensive https://t.co/5HZzSz27BP #hcldr |
 | IrmaRaste โจ InfluenceThroughStorytellingโข @IrmaRaste A commentary & perspective on the #ACOs and #ValueBasedCare from a #healthcare #COO that knows how that is done. #HCLDR @evankirstel @eViRaHealth @Gil_Bashe @corbinpetro @HlthExec @TeresaLitton @AADeanCHDA @StephenOndra @Change_HC @unclenate @DJK_HC https://t.co/djTKPkT3kL |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO RT @DrSinhaEsq: A4: A4: One idea from Luo et al. -- consider prescribing (much cheaper) human insulin over the newest/latest (and most expensive) insulin pens/devices. #hcldr #insulin4all https://t.co/TCDUPjF1Sb |
| Erin Moriarty Wade @EMoriartyWade RT @GraceCordovano: T4: T4: What drives the decision to provide a drug, such as Naloxone(Narcan) free of charge vs insulin? These are real discussions that need to be taking place. #hcldr |
| Mariah Obiedzinski @MariahWrites Absolutely, 100% yes. #hcldr https://t.co/T7kK2oThyr |
| Rachel Lewin @MedEdUnicorn RT @JoeBabaian: From @Colin_Hung - Must Read: Again that's the horrifying quirk about healthcare. You can't boycott and the alternative may not be covered under your plan so you are stuck. In no other aspect of our lives does this consumer/supplier disparity exist for long #hcldr #insulin4all https://t.co/plXC8vchMn |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet @drnic1 I acknowledge that but I truly believe they are in business to MAKE PROFIT which is my fundamental philosophical issue for healthcareโฆ #hcldr |
| Rachel Lewin @MedEdUnicorn RT @GraceCordovano: @Colin_Hung @DrDooleyMD @MelindaMWedding I know of individuals who search in their communities/network for people who have died of same diagnosis, looking to purchase unused prescriptions from their loved ones. This is happening every day. #hcldr |
| Enlightening Results ๐ก @GraceCordovano @Colin_Hung @DrDooleyMD @MelindaMWedding There are many less than desirable tactics patients use to get access to various medications they can not afford. This is just an example of why I cringe every time people call patients "consumers". It's survival, not consumerism. #hcldr |
 | Tom Boyle @TBHome @drnic1 Pricing should be more transparent but drug development cost is different than production like the gas example. I no longer know the stats but only a small % of research targets actually ever come to market The cost of research for them has 0 ROI #hcldr |
| Colin Hung @Colin_Hung @ShereesePubHlth Huh. Haven't seen that one. Thanks for sharing Shereese. Will definitely read it after the chat #hcldr |
| Bingle @TheBingle RT @Colin_Hung: @DrDooleyMD @MelindaMWedding Okay that's about the most terrible thing I've heard tonight. This is really a thing now?!! Stealing medications! #hcldr |
| Jamie Martin @DavisJamie77 @Colin_Hung So frustrating. I've spent years educating providers on how to engage patients, and educating patients on how to be engaged, and then these situations rob us of our choices. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @EMoriartyWade @hcldr Don't tell me. I'm the only adult in my family and my generation w/o diabetes. Large family. But we can't take insulin away while we try to solve the larger issue of why folk have diabetes #hcldr |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @Colin_Hung @DrDooleyMD @MelindaMWedding So true! I live around retired folks up to 100 yrs old & this happens quite often. A lot more to estate sales than most people realize #hcldr |
 | Ivey McClelland(she/her)โคโคโคโค @iveyjanette_207 RT @JoeBabaian: @lisadbudzinski @MTL613 @LAlupusLady By far! Too many people dying - slowly and quick - without access to medicines that should be - must be - within reach. #SDoH #hcldr |
| Heather McCullen @H_SalemOaks RT @pfanderson: @EMoriartyWade @hcldr Don't tell me. I'm the only adult in my family and my generation w/o diabetes. Large family. But we can't take insulin away while we try to solve the larger issue of why folk have diabetes #hcldr |
| Mariam Jacob @MariamSJacob @MedEdUnicorn @MariahWrites I was just thinking the same thing! I hear a marketing campaign developing! ๐ #hcldr #Insulin4all |
| Bingle @TheBingle @Colin_Hung @DrDooleyMD @MelindaMWedding I've heard Sharing.....but not Stealing! #hcldr |
| Colin Hung @Colin_Hung @bonniesheeren @GraceCordovano @DrDooleyMD @MelindaMWedding I guess I was naive about this. I suspect it's happening all over the world no matter if single payer or gov't funded system or not. Affordability or lack of access will drive necessity for this. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @ShereesePubHlth: T4 How Pharma Companies Game the System to Keep Drugs Expensive https://t.co/5HZzSz27BP #hcldr |
| Fred Goldstein @fsgoldstein Needs to be a return, but when US prices are so much higher than the rest of the world, we can be benevolent and pay more than others, but need to be able to take care of our own too. #hcldr https://t.co/kVq0UgrUtN |
| Bonnie C. Sheeren, BCPA @bonniesheeren T4: Looking for all sorts of ideas for #RightCareNow Action Day, May 12th! Join your local Right Care Alliance and bring your energy and creativity to addressing the insulin pricing problem! https://t.co/gxwh03HOHD #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @Colin_Hung @MTL613 MTL is amazing, right!? Such a voice that matters and is always welcome! Tonight's chat is super speed and often the transcipt is the great alternative! We'll keep the topic going. Never can have too many voices on this subject. #hcldr |
| Susan Woolner, CPXP @susanwoolner I will and I am going to dig into the work you are doing. Sorry you were overwhelmed. It happens to me on this chat too, especially with the @twitter lag. #hcldr https://t.co/ks4rMVLZ2T |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @fsgoldstein: T4 Hammer congress. We need a political movement #hcldr |
| Amanda G @LAlupusLady RT @pfanderson: @MTL613 @LAlupusLady I was copied on many messages leading up to the chat. This is an issue of urgent importance for the #insulin4all community, but is an example of famous Neimรถller quote, "First they came for ..." https://t.co/xtWeKFrKNd If we don't all stand up for insulin, we ALL suffer #hcldr |
| Mariah Obiedzinski @MariahWrites This is why words matter. ๐ฝ๐ฝ #hcldr https://t.co/FVVFso1wru |
| Jamie Roger @JamieRoger8 @pfanderson @Colin_Hung @DrDooleyMD @MelindaMWedding #crazytalk #terrifying #hcldr |
 | ๐บ๐ฆEvan Kirstel #B2B #TechFluencer @EvanKirstel RT @IrmaRaste: A commentary & perspective on the #ACOs and #ValueBasedCare from a #healthcare #COO that knows how that is done. #HCLDR @evankirstel @eViRaHealth @Gil_Bashe @corbinpetro @HlthExec @TeresaLitton @AADeanCHDA @StephenOndra @Change_HC @unclenate @DJK_HC https://t.co/djTKPkT3kL |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @IrmaRaste: A commentary & perspective on the #ACOs and #ValueBasedCare from a #healthcare #COO that knows how that is done. #HCLDR @evankirstel @eViRaHealth @Gil_Bashe @corbinpetro @HlthExec @TeresaLitton @AADeanCHDA @StephenOndra @Change_HC @unclenate @DJK_HC https://t.co/djTKPkT3kL |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @fsgoldstein Fred, first, HELLO my brother. Second, YES. Period. Now. Do it. #hcldr |
| Bob @RBlount T4: Agree. Itโs hard to jump in when things are moving so fast and โhowโ will take more time - maybe fewer questions when we take that path. #hcldr https://t.co/UQzSmnMvBg |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @TBHome @drnic1 If only we knew which were a waste of time #hcldr https://t.co/gnE0kc6o9O |
| Rachel Lewin @MedEdUnicorn YES #hcldr https://t.co/H8ZuWN2l9F |
| รick van Terheyden, MD -Dr รiรงk ๐บ๐ธ๐ฌ๐ง๐ฎ๐ช๐ณ๐ฌ๐ @drnic1 Slainte everyone - gotta blast #hcldr https://t.co/NMU0jDpQ0W |
| Mariah Obiedzinski @MariahWrites @MariamSJacob @MedEdUnicorn Count me in - happy to work on this with you. DM me! #hcldr |
| Erin Moriarty Wade @EMoriartyWade RT @MariamSJacob: @hcldr T4 Take a seat at the table. Be an active part of the legislative conversation as laws are being made. #hcldr #Insulin4all |
| Joe Babaian ๐บ๐ฆ @JoeBabaian #hcldr https://t.co/0kaZ9FdtDN |
| Dr. Victoria Dooley @DrDooleyMD RT @Colin_Hung: @DrDooleyMD @MelindaMWedding Okay that's about the most terrible thing I've heard tonight. This is really a thing now?!! Stealing medications! #hcldr |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Another great #hcldr chat! (loyal participant since March, 2012) Checkout my Health System Chats in Social VR Series (actually occurring IN #socialVR, but #VR headset NOT required) next event during #ata18 Tuesday noon EST (today's #NatCon18 big success) https://t.co/eRBZ5UOaxK https://t.co/RihrxPXUck |
| Joe Babaian ๐บ๐ฆ @JoeBabaian #hcldr https://t.co/3EVlEzUsIx |
| Fred Goldstein @fsgoldstein Thanks @JoeBabaian, Flight was delayed just got to hotel in New Havenโฆ #hcldr https://t.co/lxARMMuui1 |
| Susan Woolner, CPXP @susanwoolner amen to that. #hcldr https://t.co/OgqgLsQrky |
| Heather McCullen @H_SalemOaks @GraceCordovano @Colin_Hung @DrDooleyMD @MelindaMWedding This happens a lot in the diabetes community. People with really good insurance get far too many supplies, and they send them to people who are in need. They also pass around old medical devices. #hcldr |
| โDustin Millerโ @spdustin @hcldr @blinkhealth But with full transparency in costs as well as prices paid by cohort group, we may have enough information to lobby our legislators more effectively. Hell, maybe we can band together and create a web app that lists all the manufacturer discounts. I'm a coder. Why not? #hcldr |
| Lisa Davis Budzinski @lisadbudzinski RT @ShereesePubHlth: @DavisJamie77 But they can push for limited patents on drugs. Many don't know that even generic drug patents are owned by big pharma. It's a market-controlling measure. Ex. When the EpiPen patent was due to expire, the company filed patents under 5 additional generic names. #hcldr |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba Ok friend, I'm #htreads bookclub bound. "Get it, #bookclub..., bound," lol. Anyway, if I don't see you at #HDpalooza or #Wtfix, I'll see you around social #hcldr https://t.co/7KTHNksqkf |
| Joe Babaian ๐บ๐ฆ @JoeBabaian #hcldr https://t.co/tNMSXkuOjY |
| Rachel Lewin @MedEdUnicorn @kkcorbet @drnic1 I agreeโprofit as a goal and health/care as a goal donโt jive well #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @fsgoldstein No worries. :) #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald RT @GraceCordovano: @Colin_Hung @DrDooleyMD @MelindaMWedding There are many less than desirable tactics patients use to get access to various medications they can not afford. This is just an example of why I cringe every time people call patients "consumers". It's survival, not consumerism. #hcldr |
| HCLDR Moderator @hcldr Thatโs a wrap. Thank you to everyone who joined in on tonightโs #hcldr chat! Your time, tweets and comments are greatly appreciated. |
| Bingle @TheBingle Best Reply.... Solve the larger issue of why! #hcldr https://t.co/MRDpiDDo99 |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet T4 No just talk! Must keep pressuring PhRMA 4 lower prices, but perhaps more importantly we must work w. state level legislators for price transparency laws or drug cost commission (MD just failed but weโll try next year!) #HCLDR |
| Bob @RBlount Tonight was real and really fast. Thank you, @JoeBabaianand @Colin_Hung for your tireless efforts to lead the way #hcldr |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO #hcldr https://t.co/6Z3aO7x7Ux |
| Jamie Roger @JamieRoger8 @clayforsberg @JoeBabaian Love that. I look forward to reading that after the tweetchat. #hcldr #supportsystem #PatientExperience |
| Colin Hung @Colin_Hung @pfanderson @MTL613 @LAlupusLady T4 We need to do *something* but there is a cautionary tale of dialysis which is also life-saving, but now over-prescribed because it was made widely accessible and being exploited. Hoping we can find an answer. #hcldr |
| Enlightening Results ๐ก @GraceCordovano @lisadbudzinski @Colin_Hung @DrDooleyMD @MelindaMWedding I always wonder what happens with medications that are purchased but are never taken. There's millions of prescriptions across the nation that are paid for and wasted. Could there be a safe way to reuse? #hcldr |
| Jamie Roger @JamieRoger8 @JoeBabaian shishkabob - I missed a hashtag! #hcldr |
| Mariah Obiedzinski @MariahWrites Time to plan some action and run off some feels. Motivating chat, peeps. Keep fighting the good fight. #hcldr |
| HCLDR Moderator @hcldr Donโt forget to use the #hcldr hashtag during the rest of the week for interesting healthcare/leadership posts, pics, articles & news |
| Amanda G @LAlupusLady alternative topic for those that need "saline IVs" the price and availability of saline bags has skyrocketed since Puerto Rico is where supply comes from... #hcldr |
| Bingle @TheBingle RT @JoeBabaian: #hcldr https://t.co/tNMSXkuOjY |
| PF Anderson @pfanderson@disabled.social @pfanderson "Extrapolating these results to the whole T2DM population in France, total direct costs of diagnosed T2DM in 2013 was estimated at over โฌ8.5 billion. This estimate highlights the substantial economic burden of this condition on society." https://t.co/KdcOYjZz90 #hcldr |
 | Vince, aka AvilerED || #BlackLivesMatter @AvilerED RT @DrSinhaEsq: A1: A1: Essential drugs should not be cost prohibitive to those who need them. Period. #hcldr https://t.co/GlshWvsp4D |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet @Colin_Hung @pfanderson @MTL613 @LAlupusLady Okay Colin! Iโll def check out your article! Thanks much :) #hcldr |
| Colin Hung @Colin_Hung @Elizabe85727641 @DrDooleyMD @MelindaMWedding T4 This is definitely something that more and more docs/clinicians will have to be aware of - that affordability is a factor in the recovery #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian This #hcldr on drug access and a special focus on #insulin4all was passionate, way too fast, and important. I want to thank each of you - your voices matter. We care. We want to make changes, not just talk about it. Grateful! Period. https://t.co/CNbKIpEKmL |
| Heather McCullen @H_SalemOaks @MariahWrites I got a beer before the chat because I knew it would be intense ... I guess running is a slightly healthier option. #hcldr |
| Erin Moriarty Wade @EMoriartyWade @hcldr T4 Donโt forget about the power of small, grassroots change while we work for systemic change. Some orgs are providing reduced-price care and meds. Volunteer an hour of your time or donate to a group like this one that Iโm writing about this week. #hcldr https://t.co/f7hcTjlcH7 |
| Bingle @TheBingle RT @susanwoolner: amen to that. #hcldr https://t.co/OgqgLsQrky |
| Enlightening Results ๐ก @GraceCordovano @H_SalemOaks @Colin_Hung @DrDooleyMD @MelindaMWedding Many medications are adjusted/changed and drugs that have been purchased are no longer needed. There must be a better, safe way to repurpose? #hcldr |
| Amanda G @LAlupusLady Wow! @hcldr @JoeBabaian and @Colin_Hung = #hcldr rockstars https://t.co/4d8iIgnUbL |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @Colin_Hung @DrDooleyMD @MelindaMWedding Right?! Even when a pharmacy makes a mistake, they legally will not take it back. So here Iโm stuck with a med that will not help me in any way but it sure would someone else #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson Irony. Lower costs led to lower Rx use "A uniform capped low co-payment may give rise to a major reduction in drug consumption to a much greater extent among those who previously had free prescriptions." https://t.co/BRyVoYk8v5 #hcldr |
| Amanda G @LAlupusLady RT @JoeBabaian: This #hcldr on drug access and a special focus on #insulin4all was passionate, way too fast, and important. I want to thank each of you - your voices matter. We care. We want to make changes, not just talk about it. Grateful! Period. https://t.co/CNbKIpEKmL |
| Mariah Obiedzinski @MariahWrites @H_SalemOaks Carb-loading for your future run. Totes. ;-) #hcldr |
| Jamie Roger @JamieRoger8 @MelindaMWedding @pfanderson @Colin_Hung @DrDooleyMD That's UNREAL! The #cost of #healthcare blows my mind, and the indecency that someone has to take that away from someone is far more #mindblowing #hcldr |
| Jamie Martin @DavisJamie77 Thanks for the convo tonight - please keep up the good fight. Too many patients need the war to be won. #hcldr |
| Laura Appel @lauradianeappel @JoeBabaian @susanwoolner @aaronecarroll Story here. https://t.co/x2hRrdLcs1 Originally in @nytimes but could be behind pay wall. #hcldr |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet Thanks so much for the awesome chat! and TY again for discussing this challenging topic! Good night all~ :) #HCLDR |
| Fred Goldstein @fsgoldstein Import from Canadaโฆ 4 States are looking at it now, allowed per the Medicare Part D Bill of 2003โฆ #hcldr https://t.co/dlhOyNSjgT |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @Colin_Hung: @pfanderson @MTL613 @LAlupusLady T4 We need to do *something* but there is a cautionary tale of dialysis which is also life-saving, but now over-prescribed because it was made widely accessible and being exploited. Hoping we can find an answer. #hcldr |
| Bingle @TheBingle @DrDooleyMD @Colin_Hung @MelindaMWedding Knowledge is profitable also ....even to thieves who happen to be...... #hcldr |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @Colin_Hung @DrDooleyMD @MelindaMWedding Thereโs so many unused meds but the regulations are very tight and restricted #hcldr |
| Bingle @TheBingle RT @lauradianeappel: @JoeBabaian @susanwoolner @aaronecarroll Story here. https://t.co/x2hRrdLcs1 Originally in @nytimes but could be behind pay wall. #hcldr |
| Susan Woolner, CPXP @susanwoolner Completely agree Clay. One of the disturbing trends I see happening in HC Marketing is the use of patient stories in an exploiting way. Patient voice is authentic and shouldn't be used to monetize products and services. Educate yes, exploit no #hcldr https://t.co/UTa5qvatfZ |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet RT @MedEdUnicorn: @kkcorbet @drnic1 I agreeโprofit as a goal and health/care as a goal donโt jive well #hcldr |
| Bingle @TheBingle RT @JamieRoger8: @MelindaMWedding @pfanderson @Colin_Hung @DrDooleyMD That's UNREAL! The #cost of #healthcare blows my mind, and the indecency that someone has to take that away from someone is far more #mindblowing #hcldr |
| Erin Moriarty Wade @EMoriartyWade @pfanderson @hcldr Absolutely! I understand that completely since my dad is Type 2 diabetic! But we can still empower Type 2 diabetics to make changes, too...I have seen it work and itโs incredibly inspiring. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @Colin_Hung @MTL613 @LAlupusLady There is some fascinating research looking at how folk who don't have to worry about whether they can get or afford meds when they need them, tend to actually use less. https://t.co/BRyVoYk8v5 #hcldr |
| Colin Hung @Colin_Hung @RBlount Thanks Bob. Hope to see you soon my friend! #hcldr |
| Bingle @TheBingle RT @pfanderson: Irony. Lower costs led to lower Rx use "A uniform capped low co-payment may give rise to a major reduction in drug consumption to a much greater extent among those who previously had free prescriptions." https://t.co/BRyVoYk8v5 #hcldr |
| Heather McCullen @H_SalemOaks Hi #HTreads, I'm exhausted from #hcldr. My favorite podcast lately is The Readout Loud from @statnews |
 | Secovich @hugoallanmori RT @IrmaRaste: A commentary & perspective on the #ACOs and #ValueBasedCare from a #healthcare #COO that knows how that is done. #HCLDR @evankirstel @eViRaHealth @Gil_Bashe @corbinpetro @HlthExec @TeresaLitton @AADeanCHDA @StephenOndra @Change_HC @unclenate @DJK_HC https://t.co/djTKPkT3kL |
| Mariam Jacob @MariamSJacob @hcldr Already!?!?!?! Awww....until next week! Good night everyone! Thank you @JoeBabaian and @Colin_Hung #hcldr https://t.co/51koL3j2qJ |
| Enlightening Results ๐ก @GraceCordovano @lisadbudzinski @Colin_Hung @DrDooleyMD @MelindaMWedding So much talk about poor patient compliance & adherence. Has anyone thought about what is happening with those drugs that aren't taken? Perhaps it's time to get creative here to safely reuse? #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @LAlupusLady @hcldr @Colin_Hung Amanda, tonight that would be YOU and the voices here talking about drugs that are needed for LIFE but can't be paid for. From Insulin to rare disease therapies. What price humanity? TY so much. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson #hcldr I often see signs posted by the highway offering cash for diabetes supplies https://t.co/1XacKHKGQO |
| Erin Moriarty Wade @EMoriartyWade RT @Kidfears99: Hi #hcldr Iโm Laura and Iโve had Type 1 going on 22 years. Iโve used Humalog the entire time. Itโs remained unchanged, except the price has increased over 1200% since my diagnosis at age 14. #insulin4all |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @GraceCordovano: @lisadbudzinski @Colin_Hung @DrDooleyMD @MelindaMWedding So much talk about poor patient compliance & adherence. Has anyone thought about what is happening with those drugs that aren't taken? Perhaps it's time to get creative here to safely reuse? #hcldr |
| Erin Moriarty Wade @EMoriartyWade RT @Kidfears99: Iโve made every decision in my life based on whether I would be able to afford insulin. And without insurance, even as a DC attorney, I couldnโt. Thatโs not freedom. #hcldr #insulin4all |
 | Howard Liu, MD MBA @DrHowardLiu RT @HarrietHopfMD: Did you 1st think of yourself as leadER or leadING? Great Q for introspection from Dean Beech. #hcldr #PROWD @JulieSilverMD @DrHowardLiu @WomenSurgeons @womenMDinanesth @choo_ek @AmaliaCochranMD @AmyPearsonMD https://t.co/WARPHYTfJc |
| Amanda G @LAlupusLady RT @JoeBabaian: @LAlupusLady @hcldr @Colin_Hung Amanda, tonight that would be YOU and the voices here talking about drugs that are needed for LIFE but can't be paid for. From Insulin to rare disease therapies. What price humanity? TY so much. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @pfanderson: #hcldr I often see signs posted by the highway offering cash for diabetes supplies https://t.co/1XacKHKGQO |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet @pfanderson @Colin_Hung @MTL613 @LAlupusLady Perhaps because they can keep their head cool? ;) #hcldr |
| Erin Moriarty Wade @EMoriartyWade RT @Kidfears99: Iโve been fighting for #insulin4all since 2012, when the owner of the law firm where I was practicing died suddenly and I became โuninsurable.โ I paid $2,880 a month for the healthcare I need to stay alive, the largest portion of which was insulin. #hcldr |
| Fred Goldstein @fsgoldstein Had a great, if short time reading through some of the responses; thanks @Colin_Hung & @JoeBabaian and all of the each one of you โLeaders" on #hcldr |
| Colin Hung @Colin_Hung @GraceCordovano @lisadbudzinski @DrDooleyMD @MelindaMWedding I wonder if its the same "problem" with wasted food from restaurants. The liability is too great so they toss it rather than help. The laws eventually changed and now much less waste. Wonder if this will happen one day for drugs from "trusted" sources #hcldr |
| Jamie Roger @JamieRoger8 I can never quite understand how an hour goes by quite so fast with all of you. SO thankful for all of your insights and knowledge and straight up #humanity towards each others. Good vibes all night #hcldr #TuesdayNightFever |
| Enlightening Results ๐ก @GraceCordovano @fsgoldstein Thank you for pointing this out. Any links or references to point me in the right direction? #hcldr |
| Heather McCullen @H_SalemOaks #hcldr, my husband got too excited about this chat and now he's low. I blame all of you (this is not medically accurate) |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @TBHome @drnic1 Amortization, depreciation of research cost irrelevant? #hcldr https://t.co/qJpTplMf46 |
| Colin Hung @Colin_Hung @MarkMilliganDPT @RBlount Have a great night Mark. Thanks for joining tonight's speedy chat. #hcldr |
| Susan Woolner, CPXP @susanwoolner Sadly we see this in many rare disease communities too. There are dedicated FB pages for the exchanges. #hcldr https://t.co/Xf9NeUltF0 |
| PF Anderson @pfanderson@disabled.social @pfanderson @EMoriartyWade @hcldr I have, also. But it doesn't work for all, and has to be their choice, fit their lifestyle #hcldr |
| Angela Lautner #insulin4all @ARLinsulin4all RT @KOIInsulin4All: Hello! We are volunteer #Insulin4All advocates working to get pricing transparency legislation in Kentucky, Ohio, and Indiana. We would appreciate any retweets and follows. #hcldr |
| Colin Hung @Colin_Hung @MelindaMWedding @JamieRoger8 @pfanderson @DrDooleyMD Oh my goodness. That's more than the price of the equivalent weight of gold. #hcldr |
| Laura Appel @lauradianeappel @lollydaggle @NathanGrunewald My point was avoiding the avoidable (eg smoking related illness) could free up resources for unavoidable illness eg Type 1, CF, most cancers, hereditary heart disease, etc. #hcldr |
| Colin Hung @Colin_Hung @LAlupusLady @hcldr @JoeBabaian Thanks for being here Amanda. Always appreciate your insights. See you soon! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian Bob, thank you! We do this to give a voice and a platform not to hear ourselves talk, but to hear thoughts and new solutions grow - for real action in healthcare. With people like you, @drnic1 @RasuShrestha @GilmerHealthLaw and many we have yet to meet..... #hcldr https://t.co/TxCVPMcvg0 |
| Fred Goldstein @fsgoldstein Here is one article, an employer group had 1 person on a cancer drug for $67,000 per month, imported from Canada for $600. https://t.co/1XlwbRrCt9 #hcldr https://t.co/whpL1jt4nG |
| Erin Moriarty Wade @EMoriartyWade RT @DrSinhaEsq: Hi all, Michael from Boston, thought I'd share photos from #insulin4all @RightCareNow march in Boston a few weeks ago, where we discussed Shane's tragic situation and other patient stories #hcldr @hcldr @JoeBabaian @Colin_Hung https://t.co/bHMBBtbony |
| Jamie Roger @JamieRoger8 I also think I missed the last 7 minutes because I was so engaged with the middle chunk of this discussion. Looking forward to the #transcript #hcldr |
| Bingle @TheBingle Thanks JB, Colin and ALL for great chat. A true problem which needs resolve. The sun is shining a little more for patients bc of #hcldr |
| Susan Woolner, CPXP @susanwoolner RT @ShereesePubHlth: @DavisJamie77 But they can push for limited patents on drugs. Many don't know that even generic drug patents are owned by big pharma. It's a market-controlling measure. Ex. When the EpiPen patent was due to expire, the company filed patents under 5 additional generic names. #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @MTL613 Right?? :) Welcome to #hcldr full throttle. :) |
| Lisa Davis Budzinski @lisadbudzinski @Colin_Hung @GraceCordovano @DrDooleyMD @MelindaMWedding Wastefulness is huge in USA I donโt understand why food isnโt taken to soup kitchens every night (not just muffin stumps) There should be a useful way to repurpose meds to those who could really use/need it #hcldr |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet RT @JoeBabaian: Bob, thank you! We do this to give a voice and a platform not to hear ourselves talk, but to hear thoughts and new solutions grow - for real action in healthcare. With people like you, @drnic1 @RasuShrestha @GilmerHealthLaw and many we have yet to meet..... #hcldr https://t.co/TxCVPMcvg0 |
| Enlightening Results ๐ก @GraceCordovano @Doug_Lind_Say I disagree about overdose being an acute problem. It is actually the apex of a complex, undiagnosed, untreated, unsupported addiction, substance abuse, and/or mental health problem. #hcldr |
| Susan Woolner, CPXP @susanwoolner Fluff bunnies! Count me in! #hcldr https://t.co/DLX2xm5yQw |
 | Julie Silver, MD @JulieSilverMD RT @HarrietHopfMD: Did you 1st think of yourself as leadER or leadING? Great Q for introspection from Dean Beech. #hcldr #PROWD @JulieSilverMD @DrHowardLiu @WomenSurgeons @womenMDinanesth @choo_ek @AmaliaCochranMD @AmyPearsonMD https://t.co/WARPHYTfJc |
| Fred Goldstein @fsgoldstein It is not without its concerns, there are some crackdowns by the current FDA, although Trump said he supported importation.. Understand the risks #hcldr https://t.co/whpL1jt4nG |
| Colin Hung @Colin_Hung @lollydaggle @pfanderson @MTL613 @LAlupusLady Right. Insulin is not an opioid yet I bet many lawmakers don't know the difference so they pass regulations that end up hurting those that need it in an attempt to solve a problem in a totally different space. #hcldr |
| Heather McCullen @H_SalemOaks @JamieRoger8 Me. Always. #hcldr |
| Colin Hung @Colin_Hung @MariamSJacob @hcldr @JoeBabaian Good night Mariam! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian #hcldr - #MedEd for the public - #publichealth and all driven from WHERE folks are in life - the #SDoH determine if they understand and how they understand. https://t.co/sFk6Hn5bD7 |
| Colin Hung @Colin_Hung @pfanderson @MTL613 @LAlupusLady Another great article from @pfanderson Thanks for sharing that Patricia. Added to my must-read list. #hcldr |
| Enlightening Results ๐ก @GraceCordovano @Colin_Hung @lisadbudzinski @DrDooleyMD @MelindaMWedding I think we are on to something here. A tech to validate safety, a platform to connect/bridge needs, how can we make this happen? (There it goes, my night's sleep) #hcldr |
| Colin Hung @Colin_Hung @fsgoldstein @JoeBabaian Have a great night Fred. Thanks for joining the #hcldr chat tonight. Safe travels! |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @Colin_Hung: @lollydaggle @pfanderson @MTL613 @LAlupusLady Right. Insulin is not an opioid yet I bet many lawmakers don't know the difference so they pass regulations that end up hurting those that need it in an attempt to solve a problem in a totally different space. #hcldr |
 | James E Jones @jamesedjones RT @kkcorbet: T1 I strongly feel essential life-sustaining drugs like insulin must be protected by the govโt from price gouging, as weโve been seen over & over, free market will take advantage of peopleโs desperate needs! #hcldr |
| James E Jones @jamesedjones RT @Kidfears99: Iโve made every decision in my life based on whether I would be able to afford insulin. And without insurance, even as a DC attorney, I couldnโt. Thatโs not freedom. #hcldr #insulin4all |
 | Chas Caracoles @WeightHormones RT https://t.co/lMgepK6cKZ T1 Take a deep dive into cost comparisons in this excllent interactive @tableau data set to see the disparity between the US and the Rest of the world #diabetes #hcldr โฆ https://t.co/Qlz4040Dwc |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @H_SalemOaks @MariahWrites Sister from another mother! :) #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @MariahWrites: Time to plan some action and run off some feels. Motivating chat, peeps. Keep fighting the good fight. #hcldr |
| Kayoko โKyโ Corbet, RN, BCPA @kkcorbet RT @Kamiyamay: Where is our share humanity? It seems to only exist in the positive brainstorming chats, the other public events but is lacking in the general corporate structure-Humanity. #hcldr https://t.co/1HDlhNFmcR |
| Enlightening Results ๐ก @GraceCordovano @bbhomebody @lisadbudzinski @Colin_Hung @DrDooleyMD @MelindaMWedding Most people with any chronic conditions are in the same boat. Bottles upon bottles of unused meds for a variety of reasons. How can we reduce waste? #hcldr |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @Colin_Hung @DrDooleyMD @MelindaMWedding Not to mention, each police station has bins where people drop off unused meds that are destroyed #hcldr |
| Jamie Roger @JamieRoger8 @bbhomebody @H_SalemOaks @MariahWrites That's one way to bring out the #honest #opinions and raw input that you have to share. #hcldr |
| Mariah Obiedzinski @MariahWrites @JoeBabaian @H_SalemOaks ๐๐๐ ๐ #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @Colin_Hung: @lollydaggle @pfanderson @MTL613 @LAlupusLady Right. Insulin is not an opioid yet I bet many lawmakers don't know the difference so they pass regulations that end up hurting those that need it in an attempt to solve a problem in a totally different space. #hcldr |
| Rachel Lewin @MedEdUnicorn Well, this chat FLEW! Canโt wait for the transcript to see everything I missed. As always, thanks @JoeBabaian @Colin_Hung for being great hosts!! Such an interesting topic #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @fsgoldstein: Here is one article, an employer group had 1 person on a cancer drug for $67,000 per month, imported from Canada for $600. https://t.co/1XlwbRrCt9 #hcldr https://t.co/whpL1jt4nG |
| Susan Woolner, CPXP @susanwoolner This is an awesome resource Nick. Thanks for posting this. #hcldr https://t.co/h3yvLPjOsg |
| Colin Hung @Colin_Hung @GraceCordovano @lisadbudzinski @DrDooleyMD @MelindaMWedding There was someone I met who was trying to use blockchain to show chain of custody of drugs for the sole purpose of sending unused drugs to someone else who needed it. The issue was all the laws that can't be navigated :( #hcldr |
| HCLDR Moderator @hcldr RT @JoeBabaian: Bob, thank you! We do this to give a voice and a platform not to hear ourselves talk, but to hear thoughts and new solutions grow - for real action in healthcare. With people like you, @drnic1 @RasuShrestha @GilmerHealthLaw and many we have yet to meet..... #hcldr https://t.co/TxCVPMcvg0 |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @bbhomebody @Colin_Hung @DrDooleyMD @MelindaMWedding Tap into the sources that have the products and bridge it to those who need itโจ #hcldr |
| Colin Hung @Colin_Hung @MedEdUnicorn @JoeBabaian Have a wonderful week Rachel ! #hcldr |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @H_SalemOaks LOL! Hugs to your family - take good care of him, he's a keeper :) #hcldr |
 | Doctor as Designer @joyclee RT @drnic1: T1 Take a deep dive into cost comparisons in this excllent interactive @tableau data set to see the disparity between the US and the Rest of the world #diabetes #hcldr https://t.co/KOUpdPsTL0 https://t.co/O21jwu1dyL |
| Enlightening Results ๐ก @GraceCordovano @fsgoldstein Very interesting but I was referring to repurposing medications patients have purchased and no longer use. For example, a patient's treatment plan was changed, side effects were too great. Unused meds are paid for and just sitting there. There must be a safer way to reuse. #hcldr |
| Fred Goldstein @fsgoldstein great idea! #hcldr https://t.co/vrtvDKYuH1 |
| Joe Babaian ๐บ๐ฆ @JoeBabaian RT @susanwoolner: Completely agree Clay. One of the disturbing trends I see happening in HC Marketing is the use of patient stories in an exploiting way. Patient voice is authentic and shouldn't be used to monetize products and services. Educate yes, exploit no #hcldr https://t.co/UTa5qvatfZ |
| Joe Babaian ๐บ๐ฆ @JoeBabaian @susanwoolner THIS THIS THIS. #hcldr |
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