#HCLDR Transcript
Healthcare social media transcript of the #HCLDR hashtag.
– ().
See #HCLDR Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | HCLDR Moderator @hcldr Hello Everyone! Welcome to the weekly Health Care Leadership Tweet Chat #hcldr |
| HCLDR Moderator @hcldr Tonight on #hcldr we have special guests @DrRBhyat @Brysk_ @Infoway talking about "The Right Data, The Right Decisions - Why Patients Need Access to Their Health Information". Our blog has more info https://t.co/wgbs7xBDVp #thinkdigitalhealth https://t.co/8O1zCrTS35 |
 | Infoway @Infoway Time for today's #HCLDR tweet chat on patient access to their health information. Hope you can join us. #thinkdigitalhealth https://t.co/qyxijZ4xH4 |
 | Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: Tonight on #hcldr we have special guests @DrRBhyat @Brysk_ @Infoway talking about "The Right Data, The Right Decisions - Why Patients Need Access to Their Health Information". Our blog has more info https://t.co/wgbs7xBDVp #thinkdigitalhealth https://t.co/8O1zCrTS35 |
| Joe Babaian 🇺🇦 @JoeBabaian RT @Infoway: Time for today's #HCLDR tweet chat on patient access to their health information. Hope you can join us. #thinkdigitalhealth https://t.co/qyxijZ4xH4 |
| Infoway @Infoway @hcldr @Infoway here! #thinkdigitalhealth #HCLDR |
| HCLDR Moderator @hcldr Let’s start off with introductions! Tell us your name, what you do and where you are based #hcldr |
 | Colin Hung @Colin_Hung Evening Everyone! Colin here @DeltaOttawa tweeting live from #ThinkDigialHealth event @Infoway So great to be able to be in the same room with members of the #hcldr community for the chat |
 | Dr. Randi Dublin @RandiDublin @hcldr Hi all! Randi, psychologist from NY. #hcldr |
 | Pat Rich @pat_health @Colin_Hung @DeltaOttawa @Infoway Figures that the one time #hcldr hosts a chat in Ottawa I am down in Atlanta |
| HCLDR Moderator @hcldr For those new to #hcldr every week we gather at 8:30pm ET to discuss interesting & timely healthcare topics |
| Joe Babaian 🇺🇦 @JoeBabaian @RandiDublin @hcldr Hi Randi! #hcldr |
 | Bonnie C. Sheeren, BCPA @bonniesheeren Hi everyone! Bonnie Sheeren from Houston, TX-just back from the DC @ImproveDX conference! #hcldr https://t.co/Kv5BFvEGrW |
| Infoway @Infoway @Colin_Hung @DeltaOttawa Glad you could join us here! #HCLDR #thinkdigitalhealth |
| Joe Babaian 🇺🇦 @JoeBabaian @pat_health @Colin_Hung @DeltaOttawa @Infoway Right?! :) #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @Infoway @hcldr Hi there! #hcldr |
 | Peggy White, RN, MN, FCAN @_HOBIC Hello everyone Peggy White an RN from Ontario #HCLDR |
 | Christina Gilman @GilmanFamily @hcldr Hi, Christina from Ontario Canada Patient Advocate #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @_HOBIC Hello Peggy! #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @GilmanFamily @hcldr Welcome! #hcldr |
 | Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver Bonsoir tout le monde! Amy here in Montreal, with a good 15cm of snow on the ground here #HCLDR |
| Joe Babaian 🇺🇦 @JoeBabaian @Ctzen_Improver Hello Amy! #hcldr |
| HCLDR Moderator @hcldr Our #hcldr chat lasts 1hr. It's designed to educate & promote professional development, critical thinking & spur action |
 | Sally James @jamesian Hello #hcldr, I'm Sally from #seattle and both journalist about research and volunteer for health literacy. Photo shows how I sometimes elevate others on my team. https://t.co/28EgfaI8FM |
 | Speakbox @hi_speakbox Aidan here, Vancouver-based, our team is building collaborative #mentalhealth with a unique data system centered on the person. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @bonniesheeren @ImproveDX Hi Bonnie! #hcldr |
 | Lisa Fitzpatrick,MD @askdrfitz Hi all. Dr. Lisa in DC here. Physician, patient advocate, dreamer passionate about health literacy and patient voice. Great topic! #hcldr |
 | Nathan Grunewald MD MBA FACS @NathanGrunewald Good evening #hcldr tweeps! Chief Innovation Officer and Urologist here tonight to share why your health data is all yours and u deserve easy, understandable, and comprehensive access to it. #PtExp Hi @JoeBabaian & @Colin_Hung w👋👋 |
 | Michael W. Roberts @michaelwroberts @bonniesheeren @ImproveDX Hi, Bonnie! Looks like it was a pretty amazing event. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @askdrfitz Great seeing you Lisa! #hcldr |
 | Jon McBride 🌴 @jamcbride Hello #hcldr! Stopping by from Florida to wave hello. 🚀 |
 | Sandra Woods, CIPP/C; she/her @SandraWoodsMtl Hi #hcldr!! I'll be replying from 2 distinct perspectives, in Montreal ⤵️ . Bioethics & patient privacy professional . Rare disease & chronic pain patient; had to step away from my dream job/career in bioethics last year due to MCI from CRPS (aka Reflex Sympathetic Dystrophy) https://t.co/Rl9pYhzr3C |
| Joe Babaian 🇺🇦 @JoeBabaian @NathanGrunewald @Colin_Hung Hello Nathan my friend :) #hcldr |
| HCLDR Moderator @hcldr You can read more about each week’s topic on the #hcldr blog https://t.co/ZeXP9qYIgJ |
| HCLDR Moderator @hcldr While intros continue, let’s go over some #hcldr tweetchat guidelines. |
| Joe Babaian 🇺🇦 @JoeBabaian @michaelwroberts @bonniesheeren @ImproveDX Nice to see you Michael, welcome! #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @askdrfitz Hi Lisa! Happy ur here on #hcldr tonight! 👋 |
 | Dr Rashaad Bhyat @DrRBhyat Thanks for joining us everyone, great to be here with @Colin_Hung and my @Infoway @Access2022 colleagues #HCLDR #Thinkdigitalhealth |
 | Lewis Levy, MD, FACP @lewismlevy Good evening. Lew Levy here from chilly Boston. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @michaelwroberts @ImproveDX It was amazing! And I got to meet up with several of my advocate friends! #hcldr |
| Dr. Randi Dublin @RandiDublin @hcldr Twitter chats are the best for forging a sense of professional community! #hcldr |
 | Mario Lopez @hemo_philiaMan @hcldr Good evening, Mario from Ontario Patient advocate #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @DrRBhyat @Colin_Hung @Infoway @ACCESS2022 Welcome! Thanks for the great blog this week, we are so glad to host you! :) #hcldr |
| Michael W. Roberts @michaelwroberts Good evening, #hcldr! Michael from New Orleans here. Our company helps market practices. |
| Colin Hung @Colin_Hung A view from the live tweetup room at #ThinkDigitalHealth for tonight's #hcldr chat. Hello @JoeBabaian !!! https://t.co/kwBcqDkuqV |
 | Ann-Marie O'Brien @StrongGirl51 Good evening from Ottawa Ontario we have a beautiful full moon and a chilly -20C tonight! I’m Ann-Marie, social worker, and lead for women’s mental health . #hcldr |
 | Maggie Keresteci 🇨🇦 @MaggieKeresteci Maggie here in Toronto.....freezing cold today here #HCLDR |
| Joe Babaian 🇺🇦 @JoeBabaian @hemo_philiaMan @hcldr welcome! #hcldr |
 | Enlightening Results 💡 @GraceCordovano Hi #hcldr friends! Grace, board-certified patient advocate, #PtExp enhancer, & data unblocker joining from unbelievably cold NJ. https://t.co/Fm2gtVUZvr |
| Colin Hung @Colin_Hung @NathanGrunewald @JoeBabaian Hello Nathan. Always good to see you #hcldr |
| HCLDR Moderator @hcldr We assume all tweets during #hcldr express your own personal opinions & not those of your employer (unless specified) |
| HCLDR Moderator @hcldr Watch this blue #hcldr avatar for the 4 questions we’ll be discussing. They are labeled T1, T2, T3 and T4. |
| Joe Babaian 🇺🇦 @JoeBabaian @RandiDublin @hcldr Hello Randi! #hcldr |
 | Dr. Gail Beck @GailYentaBeck Joining #hcldr this evening from the comfort of my warm, cozy office in Ottawa and looking forward to this discussion. |
| Joe Babaian 🇺🇦 @JoeBabaian @RareCandace Hi there Candace! #hcldr |
 | Hayman ⭕️ @realHayman @hcldr Hi all Old and New tweeps. Hayman, MD and tech in Toronto. Will be lurking and listening to the diverse voices here. #hcldr |
| Dr. Randi Dublin @RandiDublin @hi_speakbox I’m interested to hear more. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @lewismlevy Lewis, always a pleasure. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @askdrfitz @ImproveDX A conference dedicated to eliminating diagnostic error due to bias or other factors. Fascinating! #hcldr |
| Colin Hung @Colin_Hung @RareCandace Hello Candace. Jealous. We're in an inch of snow here in Ottawa for #hcldr tonight #ThinkDigitalHealth |
| Enlightening Results 💡 @GraceCordovano @jamesian Great to see you Sally! #hcldr |
| Infoway @Infoway RT @DrRBhyat: Thanks for joining us everyone, great to be here with @Colin_Hung and my @Infoway @Access2022 colleagues #HCLDR #Thinkdigitalhealth |
| Joe Babaian 🇺🇦 @JoeBabaian @realHayman @hcldr Great seeing you! #hcldr |
| Michael W. Roberts @michaelwroberts @JoeBabaian @bonniesheeren @ImproveDX Thanks, Joe! We’re not quite as cold here, but it’s cold for NOLA! #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @RareCandace Hi Candace...Can you send some of that heat up here? Pretty please? #hcldr |
 | Isabel Jordan (She/Her) @seastarbatita Hey everyone.. haven't tweeted here in a while. Isabel here, normally from Canada's west coast. Today tweeting from chilly Ottawa at @infoway's #ThinkDigitalHealth partnership conference #hcldr |
| Colin Hung @Colin_Hung @RandiDublin @hcldr Hello Dr. Randi. Thanks for being online with us tonight #hcldr |
| Enlightening Results 💡 @GraceCordovano @bonniesheeren @ImproveDX Great news & great to see you Bonnie! #hcldr |
| Infoway @Infoway RT @Colin_Hung: A view from the live tweetup room at #ThinkDigitalHealth for tonight's #hcldr chat. Hello @JoeBabaian !!! https://t.co/kwBcqDkuqV |
| HCLDR Moderator @hcldr Please mark your answers with the appropriate T1, T2, T3 or T4 label so that people will know what you are responding to. #hcldr |
| HCLDR Moderator @hcldr Dissenting comments and opposing views are perfectly acceptable. Personal attacks, vulgar language and negative tweets directed at an individual are not tolerated. #hcldr |
 | Catherine Parry @caparry Great to be following this thread! #HCLDR |
| Joe Babaian 🇺🇦 @JoeBabaian @seastarbatita @Infoway Happy to have you here! It's a treat! #hcldr |
 | Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD Hey #hcldr. I'm Mario out of Houston. I'm helping doctors reclaim their #autonomy. |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello friends. I'm Shereese from Maryland #hcldr https://t.co/l7JoSdQ9XJ |
| Michael W. Roberts @michaelwroberts @bonniesheeren @ImproveDX That’s so awesome. Always good to get the posse together. :) #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @GailYentaBeck Under a layer of snow in Ottawa, same as here in Montreal? #hcldr |
 | Laura Appel @lauradianeappel Also tuning in from the winter wonderland. Predicted low of 6°f. Not Montreal weather but cold for MIchigan. 🙂 #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @SandraWoodsMtl @GailYentaBeck Hello Sandra! #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @caparry Welcome! #hcldr |
| Speakbox @hi_speakbox @RandiDublin may take more than 280 characters. let's connect, I'll DM you. #hcldr |
 | Ted Chan @upwardmobility Hi #hcldr! Ted Chan from @caredash checking in from outside Boston. |
| Bonnie C. Sheeren, BCPA @bonniesheeren @JoeBabaian @ImproveDX Hey Joe! Staying warm? BRRRRRR---so cold for us Texans! #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @MaggieKeresteci Waving a big #hcldr hello from Montreal, Maggie! |
| HCLDR Moderator @hcldr This chat usually goes VERY quickly & lots of ideas will be shared, so please try to stay on topic. #hcldr |
| HCLDR Moderator @hcldr Let’s get ready for T1 in just 1 minute #hcldr |
| Colin Hung @Colin_Hung @GraceCordovano Hello Grace. Great to see you on #hcldr |
| Enlightening Results 💡 @GraceCordovano @JoeBabaian @pat_health @Colin_Hung @DeltaOttawa @Infoway Hi Colin & Joe! Thrilled to be able to join tonight's discussion! #hcldr #PatientAdvocacy https://t.co/Is0v6qnItc |
| Infoway @Infoway @seastarbatita Thanks for joining us. #HCLDR #ThinkDigitalHealth |
| Joe Babaian 🇺🇦 @JoeBabaian @lauradianeappel Hello there Laura, thanks for dropping in :) #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @Colin_Hung @JoeBabaian @ACCESS2022 @seastarbatita @DrRBhyat @Infoway Waving a great big #hcldr HELLOOOOOO from Montreal! |
| Joe Babaian 🇺🇦 @JoeBabaian @GraceCordovano @pat_health @Colin_Hung @DeltaOttawa @Infoway Hi Grace! So excited to see you! :) #hcldr |
| Sally James @jamesian @michaelwroberts Hi - nice to meet you here. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @lauradianeappel Wow. #hcldr |
| Colin Hung @Colin_Hung @GailYentaBeck We're just down the street @DeltaOttawa !!! Next time we'll have to meetup...when its warmer. #hcldr |
| HCLDR Moderator @hcldr T1 Do you have access to your health record — how has having access or not having access impacted your ability to manage your own care? #hcldr https://t.co/EKQO7IEzJh |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @NathanGrunewald @JoeBabaian @Colin_Hung Happy #hcldr Day, from snowy Montreal '-) |
| Sally James @jamesian @GraceCordovano Hi back and thanks for all your recent help! #hcldr |
| Colin Hung @Colin_Hung @k_schuler Hello Katy. So nice to have your opinion tonight on #hcldr |
| Speakbox @hi_speakbox thrilled to see several public/patient voices tonight! Health data access is everyone's conversation. #hcldr |
| Pat Rich @pat_health OK. Once we reference #hcldr #thinkdigital health @Colin_Hung @JoeBabaian and the @Infoway crew there isn't going to be much room for comment. |
| Colin Hung @Colin_Hung @realHayman @hcldr Hayman!!!! So amazing to see you my friend. Wish you were here in Ottawa. #hcldr |
| Michael W. Roberts @michaelwroberts @jamesian Please to meet you, and I love the photo! #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @jamesian Great #Hcldr photo, Sally!! |
| Lewis Levy, MD, FACP @lewismlevy @Colin_Hung @JoeBabaian @ACCESS2022 @seastarbatita @DrRBhyat @Infoway Great pic! #ThinkDigitalHealth #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @NathanGrunewald Hey Doc. How's your weather? #hcldr |
| Colin Hung @Colin_Hung @seastarbatita @Infoway Hello Isabel!!! Oh wait you are in the room with us... #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @GilmanFamily @hcldr Hi province-neighbour! #Hcldr |
 | jenny metz✌ @jennmetzz @hcldr Hi all! Jenn from philly here! #hcldr |
| Sally James @jamesian @SandraWoodsMtl Hoping someone would see the humor! Someone else took photo, otherwise, I might have made it a loop/GIF. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian In honour :) of the Canadian version of #hcldr, please enjoy one of my favorite Canadian bands :) :) @barenakedladies https://t.co/rkoMGTWpPV |
| Pat Rich @pat_health My driveway in Ottawa this morning. Which I thankfully did not have to shovel since I wasn't there. #hcldr https://t.co/f4xCDIxQuq |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @hemo_philiaMan @hcldr Sorry Mario. But there's already a Mario here.😂 #hcldr https://t.co/Qdziw1KsO2 |
| Colin Hung @Colin_Hung @ShereesePubHlth Hello Shereese Always a pleasure #hcldr |
| Dr. Randi Dublin @RandiDublin A1: i have access...its empowering to be able to view my health over time and ask questions of my providers via a messaging feature. #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz T1. I don’t because I had Kaiser insurance and they kicked me out for a late premium so I can’t access. Before that I sought care at different systems that don’t communicate and frankly it’s a hassle #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @ShereesePubHlth Feels like this...#hcldr https://t.co/QY6Ve6nc1u |
| Joe Babaian 🇺🇦 @JoeBabaian RT @pat_health: OK. Once we reference #hcldr #thinkdigital health @Colin_Hung @JoeBabaian and the @Infoway crew there isn't going to be much room for comment. |
| Colin Hung @Colin_Hung @michaelwroberts @bonniesheeren @ImproveDX Hello Michael! #hcldr |
| Isabel Jordan (She/Her) @seastarbatita @Colin_Hung @Infoway Look to your right Colin... lol! #hcldr |
| Colin Hung @Colin_Hung RT @hcldr: T1 Do you have access to your health record — how has having access or not having access impacted your ability to manage your own care? #hcldr https://t.co/EKQO7IEzJh |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T1 No ↔️ Not from any of my physicians 😖 . Cardiologist (preventive) . Dermatologist . Gynecologist . Family physician . University-hospital, pain management unit ⤵️ ➡️ From a bioethics perspective, this is apalling & hinders improvement of #healthliteracy https://t.co/sT20f7qdok |
| Joe Babaian 🇺🇦 @JoeBabaian @pat_health @Colin_Hung @Infoway Exactly :) :) #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @Colin_Hung Hi Colin #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T1 Some on my health record I would consider electronically accessible. Most of it not, including all my childhood records which were destroyed years ago. As such, I would state my care may impacted due to lack of historical knowledge. #hcldr |
| Infoway @Infoway RT @hcldr: T1 Do you have access to your health record — how has having access or not having access impacted your ability to manage your own care? #hcldr https://t.co/EKQO7IEzJh |
| Dr Rashaad Bhyat @DrRBhyat T1 Interested in responses to this one… @Infoway and many others are working to expand secure patient access to health records across Canada. However, it’s still relatively early days. @ACCESS2022 #HCLDR #thinkdigitalhealth |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T1 As a patient managing several chronic illnesses - #CRPS, asthma, IBS - it's frustrating to have to . Ask for paper copies of results of my lab/other tests . Sometimes pay for these copies😖 COPIES😖 . Drag a binder full of these documents around to medical appointments https://t.co/zKeLg8a1T2 |
| Colin Hung @Colin_Hung RT @SandraWoodsMtl: #hcldr T1 As a patient managing several chronic illnesses - #CRPS, asthma, IBS - it's frustrating to have to . Ask for paper copies of results of my lab/other tests . Sometimes pay for these copies😖 COPIES😖 . Drag a binder full of these documents around to medical appointments https://t.co/zKeLg8a1T2 |
| Peggy White, RN, MN, FCAN @_HOBIC T1 No I do not have access to my EHR but when I have bloodwork done I am able to view results. It is important that people have access beyond lab and diagnostics to manage self-care #HCLDR |
| Ted Chan @upwardmobility T1: I support a loved one w/ chronic health issues. Our experience w/ fake review led me to start @caredash but the first pain point I wanted to work on was a unified medical record. I gave up when it just felt impossible to either do or build a real business around. #hcldr |
| Infoway @Infoway As of 2019, 20% of Canadians have digitally accessed their health records in the past, a significant jump from 17% in 2018. #HCLDR #thinkdigitalhealth T1 |
| Maggie Keresteci 🇨🇦 @MaggieKeresteci T1. I have access to bits and pieces, but no one seems to have a cohesive record of my healthcare journey. I seem to have many disparate records, with each one focused on a disease or episode or aspect of my health, not the continuum of the journey or the whole person. #HCLDR |
| Colin Hung @Colin_Hung RT @_HOBIC: T1 No I do not have access to my EHR but when I have bloodwork done I am able to view results. It is important that people have access beyond lab and diagnostics to manage self-care #HCLDR |
| Lisa Fitzpatrick,MD @askdrfitz T1. I’ve also had to pay to get a copy and that also irked me. If it’s mine why am I paying a health system for it? #hcldr |
| Michael W. Roberts @michaelwroberts @Colin_Hung @bonniesheeren @ImproveDX Good evening! Looks like you’re keeping plenty busy up that way! Been enjoying the tweets #hcldr |
| Pat Rich @pat_health T1 I'm an adult, relatively involved, live in Canada, have an engaged family doctor and have no access to any part of my own health record #hcldr |
 | Christina Lizaso @btrfly12 RT @hcldr: Tonight on #hcldr we have special guests @DrRBhyat @Brysk_ @Infoway talking about "The Right Data, The Right Decisions - Why Patients Need Access to Their Health Information". Our blog has more info https://t.co/wgbs7xBDVp #thinkdigitalhealth https://t.co/8O1zCrTS35 |
| Infoway @Infoway Canadians who can access their medical information are more likely to be more confident. #HCLDR #thinkdigitalhealth |
| Peggy White, RN, MN, FCAN @_HOBIC RT @NathanGrunewald: @ShereesePubHlth Feels like this...#hcldr https://t.co/QY6Ve6nc1u |
| Isabel Jordan (She/Her) @seastarbatita T1 i have partial access. which is worse than no access - because I don't know what's on my electronic record and what is missing, making it basically useless to me. It says some reports are missing, but I have *no idea* which ones #hcldr |
 | Patient Critical Co-op @PatientCritical PJ Mierau from @PatientCritical Co-op in Canada. Happy to discuss why patients should have access to their medical record! Like most things I bet the devil lies in the details of 'how':) #HCLDR |
| Colin Hung @Colin_Hung RT @upwardmobility: T1: T1: I support a loved one w/ chronic health issues. Our experience w/ fake review led me to start @caredash but the first pain point I wanted to work on was a unified medical record. I gave up when it just felt impossible to either do or build a real business around. #hcldr |
 | 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @pat_health: T1 I'm an adult, relatively involved, live in Canada, have an engaged family doctor and have no access to any part of my own health record #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @seastarbatita: T1 i have partial access. which is worse than no access - because I don't know what's on my electronic record and what is missing, making it basically useless to me. It says some reports are missing, but I have *no idea* which ones #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren RT @NathanGrunewald: T1 Some on my health record I would consider electronically accessible. Most of it not, including all my childhood records which were destroyed years ago. As such, I would state my care may impacted due to lack of historical knowledge. #hcldr |
| Dr Rashaad Bhyat @DrRBhyat RT @Infoway: Canadians who can access their medical information are more likely to be more confident. #HCLDR #thinkdigitalhealth |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 I have very easy access to my records. Having the access keeps me more accountable tp my own health. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @pat_health: T1 I'm an adult, relatively involved, live in Canada, have an engaged family doctor and have no access to any part of my own health record #hcldr |
| Enlightening Results 💡 @GraceCordovano T1) Have the majority of my records, not all. Definitely do not have all images. Access to pathology slides, if & when needed, is not an easy undertaking. #hcldr |
| Christina Gilman @GilmanFamily @hcldr T1: No, I do not have access to my digital health records. Nor do I have access to the paper based records of my kids. It is a hinder to my care due to the time and expense of requesting my info. Often times I am a currier between Dr’s at my expense. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @GraceCordovano: T1) Have the majority of my records, not all. Definitely do not have all images. Access to pathology slides, if & when needed, is not an easy undertaking. #hcldr |
| Infoway @Infoway There is a gap between those who have access and those who want access. 79% of Canadians are interested in accessing their personal health information electronically. #HCLDR #thinkdigitalhealth |
| Speakbox @hi_speakbox RT @Infoway: Canadians who can access their medical information are more likely to be more confident. #HCLDR #thinkdigitalhealth |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @askdrfitz Ridiculous. It's your info and data. You paid for it. You should have easy access to it. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @_HOBIC: T1 No I do not have access to my EHR but when I have bloodwork done I am able to view results. It is important that people have access beyond lab and diagnostics to manage self-care #HCLDR |
| Peggy White, RN, MN, FCAN @_HOBIC RT @SandraWoodsMtl: #hcldr T1 As a patient managing several chronic illnesses - #CRPS, asthma, IBS - it's frustrating to have to . Ask for paper copies of results of my lab/other tests . Sometimes pay for these copies😖 COPIES😖 . Drag a binder full of these documents around to medical appointments https://t.co/zKeLg8a1T2 |
| Joe Babaian 🇺🇦 @JoeBabaian RT @NathanGrunewald: T1 Some on my health record I would consider electronically accessible. Most of it not, including all my childhood records which were destroyed years ago. As such, I would state my care may impacted due to lack of historical knowledge. #hcldr |
| Colin Hung @Colin_Hung @upwardmobility @caredash T1 Unfortunately Ted you are not alone in that. It's very hard to pull together your own EHR. Lots of legwork, frustration and $$$ but the picture it paints is both enlightening and frightening #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @seastarbatita @Colin_Hung @Infoway Great BIG #Hcldr hello my west coast friend!!! My family in Vancouver area tells me the weather's nice there '-) |
| Infoway @Infoway RT @DrRBhyat: T1 Interested in responses to this one… @Infoway and many others are working to expand secure patient access to health records across Canada. However, it’s still relatively early days. @ACCESS2022 #HCLDR #thinkdigitalhealth |
| Ted Chan @upwardmobility @caredash T1 Now I just tweet deflated musings when another ambitious entrepreneur tries to make medical records accessible fails and pivots to EMR interop. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T1 Now that I'm dealing with mild cognitive impairment (MCI), due to constant & severe chronic pain from #CRPS, having eAccess to my medical records & physician notes would be helpful ⤵️ Because, of course, I now sometimes forget instructions 🤕 ⤵️ How many others?... https://t.co/RDmAe9kgvk |
| Dr. Randi Dublin @RandiDublin @SandraWoodsMtl Frustrating! #hcldr |
| HCLDR Moderator @hcldr Repeating T1 Do you have access to your health record — how has having access or not having access impacted your ability to manage your own care? #hcldr https://t.co/iiPIivZO8h |
| Colin Hung @Colin_Hung RT @hcldr: Repeating T1 Do you have access to your health record — how has having access or not having access impacted your ability to manage your own care? #hcldr https://t.co/iiPIivZO8h |
| Infoway @Infoway Access to their information is especially important for patient managing chronic conditions. #HCLDR #thinkdigitalhealth |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver T1: I am part of the 80% of Canadians that @Infoway says does NOT have access to their EMR Youngest kid had surgery twice, and our paediatrician doesn't have access to his medical file, even though she has privileges at children's hospital where he had sugery #hcldr |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @hcldr T1: No I do not. We did allow military air crewman to carry their own records. I can tell you that it didn't decrease or increase the medical readiness nor did it increase or decrease their need for care. #hcldr |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @hcldr: Repeating T1 Do you have access to your health record — how has having access or not having access impacted your ability to manage your own care? #hcldr https://t.co/iiPIivZO8h |
| Pat Rich @pat_health RT @Ctzen_Improver: T1: T1: I am part of the 80% of Canadians that @Infoway says does NOT have access to their EMR Youngest kid had surgery twice, and our paediatrician doesn't have access to his medical file, even though she has privileges at children's hospital where he had sugery #hcldr |
| Ann-Marie O'Brien @StrongGirl51 A1 My 83 yr old mom was facing some major surgery;we had an important talk with the surgical team who explained the plan, the risks and the contingencies. It was a lot to digest. I asked for a copy of the note and got it -no hassell. Really helped informed decision making. #hcldr |
 | Katy Schuler, MSc @k_schuler @hcldr T1: Yes, I have access & just switched PCPs. I had to go through the process of getting paper records only to have new PCP pull everything through in #EHR #HCLDR |
| Isabel Jordan (She/Her) @seastarbatita This is the problem right here.. 'what my providers have chosen to release to me'. The choice is vested in the wrong decision maker here. #hcldr |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @Ctzen_Improver: T1: T1: I am part of the 80% of Canadians that @Infoway says does NOT have access to their EMR Youngest kid had surgery twice, and our paediatrician doesn't have access to his medical file, even though she has privileges at children's hospital where he had sugery #hcldr |
| Sally James @jamesian Some of my records - very recent - are accessible. #hcldr Oddly, place with worst electronic access is super-high-powered research place. Anyone else wonder how much gadolinium is too much? #MRI No access to my records for preventive testing. |
| Bonnie C. Sheeren, BCPA @bonniesheeren RT @SandraWoodsMtl: #hcldr T1 Now that I'm dealing with mild cognitive impairment (MCI), due to constant & severe chronic pain from #CRPS, having eAccess to my medical records & physician notes would be helpful ⤵️ Because, of course, I now sometimes forget instructions 🤕 ⤵️ How many others?... https://t.co/RDmAe9kgvk |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @seastarbatita: This is the problem right here.. 'what my providers have chosen to release to me'. The choice is vested in the wrong decision maker here. #hcldr |
| Ted Chan @upwardmobility @Colin_Hung @caredash I helped build a open source mobile EMR that’s used in 13 developing countries. How hard can US personal health records be? (Really really really hard) #hcldr |
| Lewis Levy, MD, FACP @lewismlevy A1: In short yes- but the bigger question is how EASY is it to access your records? More intuitive & collaborative patient portals are needed to truly engage patients w/their data to empower better care team decision making. #Access2022 is a win for #thinkdigitalhealth. #hcldr https://t.co/e41jwCcTl0 |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @ShereesePubHlth OMG Shereese!!! I've missed you, and these #Hcldr chats over the past few months... I've been dealing with some disease-related cognitive issues, and keeping up with chats is often too much for me these days '-( |
 | Sahba Ferdowsi DO (conciergedoc) @DrFerdowsi RT @pat_health: T1 I'm an adult, relatively involved, live in Canada, have an engaged family doctor and have no access to any part of my own health record #hcldr |
 | Bingle @TheBingle T1 Bingle joining in singing HellO Canada! Do not have all access to my records/tapes/cd's #hcldr |
| Dr. Randi Dublin @RandiDublin @MaggieKeresteci I agree that mostly my records are from the past few years, not from childhood. #hcldr |
 | Ben Moscovitch @benmoscovitch T1: the coolest part about getting data via the Apple health records app is seeing the associated FHIR code. #hcldr https://t.co/a4tyGXfnYc |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba I'm actually a long-time fan of @Infoway. I used to write about them quite a lot when they were mapping access. Some Canadians at that time were unaware of the progress. #hcldr |
| Isabel Jordan (She/Her) @seastarbatita @pat_health quit gloating pat. ;) #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @pat_health Hi Rich, Same in Montreal... First #Hcldr chat of winter, in mid-November??!! |
| Infoway @Infoway @_HOBIC Lab results are the most commonly accessed health information, with 85% of those who can access their health information accessing lab results. #HCLDR #thinkdigitalhealth |
 | Zayna Khayat, PhD @ZaynaKhayat @hcldr @Colin_Hung T1. Do not have access to my health records, but that is ok as I am generally healthy. But: as a family caregiver and advocate for family who live far away, it is just bad clinical practice that we cannot all see the same information. Shocks me to be honest. #hcldr |
| Lewis Levy, MD, FACP @lewismlevy RT @Infoway: Access to their information is especially important for patient managing chronic conditions. #HCLDR #thinkdigitalhealth |
| Colin Hung @Colin_Hung RT @ZaynaKhayat: @hcldr @Colin_Hung T1. Do not have access to my health records, but that is ok as I am generally healthy. But: as a family caregiver and advocate for family who live far away, it is just bad clinical practice that we cannot all see the same information. Shocks me to be honest. #hcldr |
| Christina Gilman @GilmanFamily RT @hcldr: T1 Do you have access to your health record — how has having access or not having access impacted your ability to manage your own care? #hcldr https://t.co/EKQO7IEzJh |
| Michael W. Roberts @michaelwroberts T1 Our family has been much more involved in access for our kids’ data. That information has been incredibly helpful in a number of ways. Honestly, I haven’t checked for myself. #hcldr |
| Pat Rich @pat_health Having had more than 5 family doctors and 2 hospital stays (at different hospitals) in my life - all of whom relied on paper records and did not pass them on - there is no way I will ever get access to a complete record #hcldr |
| Christina Lizaso @btrfly12 RT @MaggieKeresteci: T1. I have access to bits and pieces, but no one seems to have a cohesive record of my healthcare journey. I seem to have many disparate records, with each one focused on a disease or episode or aspect of my health, not the continuum of the journey or the whole person. #HCLDR |
| Peggy White, RN, MN, FCAN @_HOBIC T1 most of this access is to lab and diagnostics - people with chronic conditions need access to clinical data such as pain management and their response to different approaches #selfcare is important |
| Infoway @Infoway RT @ShereesePubHlth: T1 I have very easy access to my records. Having the access keeps me more accountable tp my own health. #hcldr |
 | Susan Woolner, CPXP @susanwoolner Thank you Linda! Some powerful female energy on this list - thank you for@including me! |
| Colin Hung @Colin_Hung @Infoway @_HOBIC T1 What I find interesting is that many have access to lab info, but how many actually take the time to understand what the lab results are telling them. Results without context aren't that useful IMHO...but it's a start #hcldr |
| Dr. Gail Beck @GailYentaBeck #hcldr T1 I do have access to parts my health record @OttawaHospital but I haven't actually looked at it. I guess that might seem odd, but I'm reasonably healthy so it doesn't seem important at the moment. |
| Joe Babaian 🇺🇦 @JoeBabaian RT @GailYentaBeck: #hcldr T1 I do have access to parts my health record @OttawaHospital but I haven't actually looked at it. I guess that might seem odd, but I'm reasonably healthy so it doesn't seem important at the moment. |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @ShereesePubHlth @Infoway #hcldr Depending on the province, many still are unaware! I talk about it a bit in Quebec, and get blank stares - from #Healthcare professionals! |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver RT @seastarbatita: This is the problem right here.. 'what my providers have chosen to release to me'. The choice is vested in the wrong decision maker here. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @pat_health: Having had more than 5 family doctors and 2 hospital stays (at different hospitals) in my life - all of whom relied on paper records and did not pass them on - there is no way I will ever get access to a complete record #hcldr |
| Infoway @Infoway A patient-centric health system isn't possible without patient access to their health information. #HCLDR #thinkdigitalhealth |
| Joe Babaian 🇺🇦 @JoeBabaian RT @michaelwroberts: T1 Our family has been much more involved in access for our kids’ data. That information has been incredibly helpful in a number of ways. Honestly, I haven’t checked for myself. #hcldr |
 | Beth Steckler (she/her) @purplemamabear T1 Beth here. I honestly believe dynamics of HC would be impacted positively in many ways if had access to chart. Both my kids (as well as husband) have rare conditions. Multiple docs involved. I have found errors and at times HC providers more comfortable #hcldr 1/ |
| Infoway @Infoway RT @NathanGrunewald: @askdrfitz Ridiculous. It's your info and data. You paid for it. You should have easy access to it. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @seastarbatita: This is the problem right here.. 'what my providers have chosen to release to me'. The choice is vested in the wrong decision maker here. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @SandraWoodsMtl How are you feeling? You haven't posted any snow pics this fall yet. #hcldr |
| Enlightening Results 💡 @GraceCordovano Here’s what access to my children’s records looks like in 2019 👇👇 Pediatrician closed his practice & this is what I got to coordinate my children’s care. I need to drive this 40 min to our new pediatricians practice so they can scan into their system. #hcldr #PtExo https://t.co/GCzH8SJHW7 |
 | Kathleen Powderley @ResponsibleComm @hcldr T1. I have had access at times. Always for a fee and long wait. #hcldr |
| Colin Hung @Colin_Hung @pat_health Stop it. @seastarbatita @HealthWorksBC and I arrive in town and you leave...that's not very Canadian of you. #hcldr |
| Laura Appel @lauradianeappel T1 Have access time data about me—standard test results, height, weight, etc. But the full record of qualitative information where the questions and decisions are? No. #hcldr |
| Lewis Levy, MD, FACP @lewismlevy @Colin_Hung @Infoway @_HOBIC Yes. It is a start, but more context is needed to make this data meaningful. #thinkdigitalhealth #hcldr |
| Isabel Jordan (She/Her) @seastarbatita We've spent 17yrs going from HCP to HCP in the community and our local children's hospital. We have a 2 *very* large binders of records at home which I know are incomplete. It is absolutely ridiculous that my son, at 18, can't pull up his health info when he sees a new HCP #hcldr |
| Dr Rashaad Bhyat @DrRBhyat T1: Patient access to health records in Saskatchewan should increase following the launch of #MySaskHealthRecord https://t.co/Q2y04fZNoS @Infoway @Access2022 @eHealthSask #HCLDR #Thinkdigitalhealth |
| Bonnie C. Sheeren, BCPA @bonniesheeren RT @GraceCordovano: Here’s what access to my children’s records looks like in 2019 👇👇 Pediatrician closed his practice & this is what I got to coordinate my children’s care. I need to drive this 40 min to our new pediatricians practice so they can scan into their system. #hcldr #PtExo https://t.co/GCzH8SJHW7 |
| Speakbox @hi_speakbox @hcldr T1. It's sad to say, but in Vancouver (a technology hub), we don't have access to our health records. #hcldr |
 | annafoat @annafoat So fundamentally key. It’s fraught with power dynamics, bad tech and antiquated privacy laws #HCLDR #thinkdigitalhealth |
| Dr Rashaad Bhyat @DrRBhyat RT @Infoway: A patient-centric health system isn't possible without patient access to their health information. #HCLDR #thinkdigitalhealth |
| Pat Rich @pat_health @Infoway Politely differ: For much of the last decade, our health system has been said to be patient-centric and few if any patients had access to their own health info #HCLDR |
| Dr Rashaad Bhyat @DrRBhyat RT @Infoway: @_HOBIC Lab results are the most commonly accessed health information, with 85% of those who can access their health information accessing lab results. #HCLDR #thinkdigitalhealth |
| Colin Hung @Colin_Hung @GraceCordovano That's so 1990s...but at least it's in a format that is compatible with your new doc. I worry about the usefulness of CDs filled with data in formats that no one can understand #hcldr |
| Lewis Levy, MD, FACP @lewismlevy RT @Infoway: A patient-centric health system isn't possible without patient access to their health information. #HCLDR #thinkdigitalhealth |
| Speakbox @hi_speakbox RT @Infoway: A patient-centric health system isn't possible without patient access to their health information. #HCLDR #thinkdigitalhealth |
 | Claudia Gomez, MD.🇨🇦🌻 @cpaolag @hcldr T1 Live in #Canada, I do have access to my own record; as I don’t have any chronic condition not too much to benefit from, but I can see how useful for patients #hcldr |
| Infoway @Infoway @jennmetzz Access could help you stay healthy. #HCLDR #thinkdigitalhealth |
| Patient Critical Co-op @PatientCritical A1: in Canada, virtually no-one has access to their health record. Those with some access have only fragments-or sort through multiple systems that aren't #interoperable. That ruins #digitalhealth's ability to reduce costs, errors, or improve care. #hcldr #thinkdigitalhealth |
 | Tom Castles @theTomCastles Found today on reddit: this earnest question and these funny (BUT REALLY SAD!) responses #hcldr https://t.co/pLvOnxuIKr |
| Mario Lopez @hemo_philiaMan @hcldr T1 Not having full access to my records becomes a safety concern when having to recount my story over and over. Hoping that I didn't forget an important detail. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @GraceCordovano And those PDF/scans will NOT auto populate important, searchable fields. It's like having a medical record with a huge shoe box attached that says, "Don't forget to look here, too...." #hcldr |
| Colin Hung @Colin_Hung RT @seastarbatita: We've spent 17yrs going from HCP to HCP in the community and our local children's hospital. We have a 2 *very* large binders of records at home which I know are incomplete. It is absolutely ridiculous that my son, at 18, can't pull up his health info when he sees a new HCP #hcldr |
| Catherine Parry @caparry 79% of Canadians are interested in accessing their personal health information electronically #thinkdigitalhealth #hcldr |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @PatientCritical: A1: A1: in Canada, virtually no-one has access to their health record. Those with some access have only fragments-or sort through multiple systems that aren't #interoperable. That ruins #digitalhealth's ability to reduce costs, errors, or improve care. #hcldr #thinkdigitalhealth |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @Colin_Hung @Infoway @_HOBIC Interpretation it the key to most of medicine...putting the puzzle together so to speak. I rely on a knowledgeable mechanic to help me understand my broken furnace. We talk, deliberate, and then we make a plan. #hcldr |
| Isabel Jordan (She/Her) @seastarbatita He has one or more rare diseases & info often has to be cross referenced b/w specialists and over the years. Right now there is no reasonable way to do this. And he as well as us, his parents, are his only care co-ordinators. How is it reasonable that we don't have access. #hcldr |
| Bingle @TheBingle T1 You must understand as Sean says:" The Providers decide what is released Captain"..... #hcldr |
 | Digital Salud @DigitalSalud1 RT @hcldr: Repeating T1 Do you have access to your health record — how has having access or not having access impacted your ability to manage your own care? #hcldr https://t.co/iiPIivZO8h |
| Infoway @Infoway @michaelwroberts Glad you find the information useful. #HCLDR #thinkdigitalhealth |
| Joe Babaian 🇺🇦 @JoeBabaian @Colin_Hung @GraceCordovano As well you should. Without standard formats, well, you know the rest. Here's your record. Best of luck? #hcldr |
 | Heather McCullen @H_SalemOaks Hi #hcldr, Heather from Ann Arbor. I'm joining a bit late because for some reason Tuesday has turned into grocery shopping day. |
| HCLDR Moderator @hcldr An amazing T1 discussion. Let’s get ready for T2 in just 1 minute #hcldr |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @pat_health: @Infoway Politely differ: @Infoway Politely differ: For much of the last decade, our health system has been said to be patient-centric and few if any patients had access to their own health info #HCLDR |
| Lewis Levy, MD, FACP @lewismlevy @Infoway Yes. Access, understanding and informed action are key tenets to a patient-centric health system. #HCLDR #thinkdigitalhealth |
| Infoway @Infoway RT @ZaynaKhayat: @hcldr @Colin_Hung T1. Do not have access to my health records, but that is ok as I am generally healthy. But: as a family caregiver and advocate for family who live far away, it is just bad clinical practice that we cannot all see the same information. Shocks me to be honest. #hcldr |
| Zayna Khayat, PhD @ZaynaKhayat @Colin_Hung @Infoway @_HOBIC When @LifeLabs first started sending lab results to pts who requested it, my doc had no idea that was happening. I recall she tried to get me to come in to discuss lab results in person, but I told her I already got them, and a phone call would do. #hcldr #PatientPull |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver Louder for the people in the back! What do we want? Patient-owned interoperable EMR! When do we want it? NOW! #WhyWeRevolt #HCLDR |
| Enlightening Results 💡 @GraceCordovano RT @caparry: 79% of Canadians are interested in accessing their personal health information electronically #thinkdigitalhealth #hcldr |
| Laura Appel @lauradianeappel T1 part deux Wish I had complete and accurate record of vaccinations. #hcldr |
 | Sue Woods MD MPH 💙 @SueWoods T1 What do you mean by records? Notes - most important - NO. Test results - labs, not imaging. Who is getting copies? Absolutely not #hcldr #OpenNotes @S4PM |
| Bingle @TheBingle Yup! #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @SueWoods: T1 What do you mean by records? Notes - most important - NO. Test results - labs, not imaging. Who is getting copies? Absolutely not #hcldr #OpenNotes @S4PM |
| Joe Babaian 🇺🇦 @JoeBabaian @SueWoods @S4PM Hi Sue! So happy to see you my friend! :) #hcldr |
| Pat Rich @pat_health RT @ZaynaKhayat: @Colin_Hung @Infoway @_HOBIC When @LifeLabs first started sending lab results to pts who requested it, my doc had no idea that was happening. I recall she tried to get me to come in to discuss lab results in person, but I told her I already got them, and a phone call would do. #hcldr #PatientPull |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @SueWoods: T1 What do you mean by records? Notes - most important - NO. Test results - labs, not imaging. Who is getting copies? Absolutely not #hcldr #OpenNotes @S4PM |
| HCLDR Moderator @hcldr T2 One of the concerns often raised about online access to health records is that it will negatively impact people who may not be tech savvy or who are financially disadvantaged. What do you think about these concerns? #hcldr https://t.co/34xKWOWeWY |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @lauradianeappel: T1 part deux Wish I had complete and accurate record of vaccinations. #hcldr |
 | Kistein Monkhouse, MPA @KisteinM @hcldr T1: Not having access to my #healthrecord has negatively impacted my #Health. It shouldn’t take 3 years + 6 specialist before being prescribed #pain #medication but in my case it did. Perhaps it was a direct result of a lack of #interoperablity or #bias in #medicine #hcldr #SDOH |
 | charscharf_health @CharscharfH RT @CCHL_Eastern_ON: Thanks @Colin_Hung & @Infoway for highlighting this great opportunity this week for learning how patients can better access their health information @SolidFooting @Patient_Safety @CCHL_CCLS #DigitalHealthWeek |
| Dr. Gail Beck @GailYentaBeck @seastarbatita @JoeBabaian I agree. As a clinician, I am aware that, by law, the health record is the patient's property and so, if they want it, I let them know that they can have a copy of their file. I think the hospital does charge a fee. My hospital has no way to access a chart online as yet. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @Brysk_ @NatriceR Welcome Katie! You are going to make your Twitter account sing! :) #hcldr |
| charscharf_health @CharscharfH RT @NathanGrunewald: @askdrfitz Ridiculous. It's your info and data. You paid for it. You should have easy access to it. #hcldr |
| Patient Critical Co-op @PatientCritical @benmoscovitch The fascinating part about Apple's FHIR implementation is you can see which providers #silo and turn off sharing. That should be a pressure point for better care, not a net positive for co's that value customer lock-in. #thinkdigitalhealth #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren RT @hcldr: T2 One of the concerns often raised about online access to health records is that it will negatively impact people who may not be tech savvy or who are financially disadvantaged. What do you think about these concerns? #hcldr https://t.co/34xKWOWeWY |
| Christina Gilman @GilmanFamily RT @hcldr: T2 One of the concerns often raised about online access to health records is that it will negatively impact people who may not be tech savvy or who are financially disadvantaged. What do you think about these concerns? #hcldr https://t.co/34xKWOWeWY |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @GailYentaBeck: @seastarbatita @JoeBabaian I agree. As a clinician, I am aware that, by law, the health record is the patient's property and so, if they want it, I let them know that they can have a copy of their file. I think the hospital does charge a fee. My hospital has no way to access a chart online as yet. #hcldr |
| Christina Gilman @GilmanFamily @hcldr T2: In my opinion, the concerns that are raised are valid and with proper #patientengagement we can find solutions to address these concerns #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @ShereesePubHlth Here you go! Fresh #hcldr snow, from this morning 😱 https://t.co/E5l4ys39M6 |
| Maggie Keresteci 🇨🇦 @MaggieKeresteci @Colin_Hung @Infoway @_HOBIC I think for things like lab results there is an opportunity to do some "mass" education about what results mean, what needs follow up etc. They all don't require one on one debriefs with doc - imagine the efficiencies? #HCLDR |
| Colin Hung @Colin_Hung @Brysk_ T1 The quest for your own records is like an epic tale ...many people have tried. Very few I find ever reach 100% #hcldr |
| Katy Schuler, MSc @k_schuler @SueWoods T1: good point. I see labs but not notes (I don't think) #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @NathanGrunewald: @Colin_Hung @Infoway @_HOBIC Interpretation it the key to most of medicine...putting the puzzle together so to speak. I rely on a knowledgeable mechanic to help me understand my broken furnace. We talk, deliberate, and then we make a plan. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T2b EMR use by patients should never be mandatory = Patient's choice ⤵️ 1 Tech unsavvy - By choice? A. Yes = OK B. No = Shouldn't matter, if EMR's user-friendly🤔 2 Financial - Do they want EMR? C. No = OK D. Yes = Refer to free tech access; libraries, community centres... https://t.co/5H7tonlhom |
| HCLDR Moderator @hcldr RT @GraceCordovano: Here’s what access to my children’s records looks like in 2019 👇👇 Pediatrician closed his practice & this is what I got to coordinate my children’s care. I need to drive this 40 min to our new pediatricians practice so they can scan into their system. #hcldr #PtExo https://t.co/GCzH8SJHW7 |
| Bonnie C. Sheeren, BCPA @bonniesheeren RT @KisteinM: @hcldr T1: @hcldr T1: Not having access to my #healthrecord has negatively impacted my #Health. It shouldn’t take 3 years + 6 specialist before being prescribed #pain #medication but in my case it did. Perhaps it was a direct result of a lack of #interoperablity or #bias in #medicine #hcldr #SDOH |
| HCLDR Moderator @hcldr RT @JoeBabaian: @GraceCordovano And those PDF/scans will NOT auto populate important, searchable fields. It's like having a medical record with a huge shoe box attached that says, "Don't forget to look here, too...." #hcldr |
| Pat Rich @pat_health Apologies if I can't keep up. This hotel WiFi access hasn't been upgraded to the speed of #hcldr chats. |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR @GailYentaBeck @seastarbatita @JoeBabaian It’s kind of sad how delayed health care facilities are in our modern world ... #hcldr |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @michaelwroberts Mind sharing what exactly about this information do you find useful and how do you use this information? Ex: Do you have to google words or terms often or do you feel that your background in healthcare helps with your level of understanding? #hcldr |
| Enlightening Results 💡 @GraceCordovano @Colin_Hung I'm glad I have access to at least this bc now I can see how much is missing from this copy: lab tests, imaging, specialists consults. Need to go hunting for the missing pieces. #hcldr #interoperability #UnblockHealth |
| Infoway @Infoway @k_schuler @_HOBIC Patients who do have access to their lab information are less apt to call their doctor in relation to their tests. In a study, 76% of patients who first saw their lab results online were confident they understood the results. #HCLDR #thinkdigitalhealth |
| Colin Hung @Colin_Hung RT @hcldr: T2 One of the concerns often raised about online access to health records is that it will negatively impact people who may not be tech savvy or who are financially disadvantaged. What do you think about these concerns? #hcldr https://t.co/34xKWOWeWY |
| Peggy White, RN, MN, FCAN @_HOBIC I agree I think there are solutions |
 | Ester Gritsaeva @estergritsaeva @hcldr T2 Currently, there are more people who have access to the Internet that those who have access to proper housing. Your health records are yours and you should be able to always access them #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @NatriceR @GailYentaBeck @seastarbatita @JoeBabaian Hi Natrice, happy #hcldr day!! |
 | Nick Adkins @nickisnpdx @ZaynaKhayat @Colin_Hung @hcldr hat tip @Ascensionorg & @Google 👊 #GSD https://t.co/D5zgF7hoFV #hcldr 🏆🏁 |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T2a From my bioethics experience, I know that some patients truly do not want to be involved in their care decisions or to have access to their data ⤵️ This must always be respected ↔️ Patients shouldn't be bullied or cajoled into using EMR = Medical paternalism, again... https://t.co/HIF7xifsB4 |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Nice. We finally got snow at the shore today but as you can imagine it was very little. #hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver @Infoway @_HOBIC And could we have these in electronic format please? It is a matter of #PatientSafety that cancer patients in particular are NOT at the mercy of Canada Post to wait on lab results to calibrate chemo treatment. I kid you not, and this is 2019! #WhyWeRevolt #HCLDR |
| Enlightening Results 💡 @GraceCordovano @JoeBabaian Unstructured, unusable, not interoperable FTW #hcldr #PtExp https://t.co/IsJSUwR1fq |
| Colin Hung @Colin_Hung RT @SandraWoodsMtl: #hcldr T2b EMR use by patients should never be mandatory = Patient's choice ⤵️ 1 Tech unsavvy - By choice? A. Yes = OK B. No = Shouldn't matter, if EMR's user-friendly🤔 2 Financial - Do they want EMR? C. No = OK D. Yes = Refer to free tech access; libraries, community centres... https://t.co/5H7tonlhom |
| Dr. Randi Dublin @RandiDublin A2: these are valid concerns bit why would it have a negative impact? #hcldr |
| Peggy White, RN, MN, FCAN @_HOBIC Agree and over time people will see if there are changes and reach out for explanations |
| charscharf_health @CharscharfH RT @Infoway: Access to their information is especially important for patient managing chronic conditions. #HCLDR #thinkdigitalhealth |
| Patient Critical Co-op @PatientCritical A1: my personal experience with #digitalhealrh records is that most of my providers don't use them. When caregiving for a family member who did have them, the records had to be printed up and carried to a different department -in same hospital- multiple times. #hcldr |
| Colin Hung @Colin_Hung RT @ZaynaKhayat: @Colin_Hung @Infoway @_HOBIC When @LifeLabs first started sending lab results to pts who requested it, my doc had no idea that was happening. I recall she tried to get me to come in to discuss lab results in person, but I told her I already got them, and a phone call would do. #hcldr #PatientPull |
| Infoway @Infoway @ResponsibleComm @hcldr You should be able to instantly access your information. #HCLDR #thinkdigitalhealth |
 | Dr. Sylvia “Voice” Bollie, MD, DABOM @EmbraceYouMD T1. I do. Having access to the health record is very empowering. It fosters true partnership in the medical relationships rather than paternalism. Ideally a patient shouldn’t have to manage their own care rather be a partner and #️⃣1️⃣advocate in their health #hcldr |
| Laura Appel @lauradianeappel @JoeBabaian @GraceCordovano But the paper will generally be in a readable format...digital is not as long-term as hard copy. #hcldr |
| Speakbox @hi_speakbox T2. We cannot allow #digitalhealth to become a luxury product. Inspired by @UNICEFinnovate Digital access project https://t.co/GkQmWjB6dm. As we build health solutions, let's ensure all can access them. #hcldr #socialenterprise |
| Infoway @Infoway RT @caparry: 79% of Canadians are interested in accessing their personal health information electronically #thinkdigitalhealth #hcldr |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR @Brysk_ welcome to Twitter - you are already connecting with great folk #hcldr and you don’t even need training wheels 👍🏻👏🏻 |
 | Emcmanus @e45mcmanus RT @Infoway: A patient-centric health system isn't possible without patient access to their health information. #HCLDR #thinkdigitalhealth |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @ShereesePubHlth I'm guessing nowhere near this level!! #hcldr weather comparisons '-) |
| Beth Steckler (she/her) @purplemamabear T2 yet it is, IMO, our information. I don’t want someone to be honest telling me I don’t have knowledge. I do get concern but my question how tackle concern to give inds skills if they feel need to leverage their chart. Not other way around if that makes sense #HCLDR |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T2 Not an either/or question. Providing the option for patients access to their records electronically should be standard. All patient records, in a readable well organized form. Option for printed form always a backup (+free) option. #hcldr |
| Ann-Marie O'Brien @StrongGirl51 T2 in our case we didn’t want or need the entire record it was just one conversation with the team who required a decision from us. I just asked for a printed copy. #hcldr |
| Michael W. Roberts @michaelwroberts @MarioATX_MD I know I’m not catching everything that’s in there, but our doctors have trained us to look for specific stats / markers that relate to our daughter’s condition. We can look at the tests and at least understand positive/negative trends. #hcldr |
| Infoway @Infoway RT @seastarbatita: He has one or more rare diseases & info often has to be cross referenced b/w specialists and over the years. Right now there is no reasonable way to do this. And he as well as us, his parents, are his only care co-ordinators. How is it reasonable that we don't have access. #hcldr |
 | PR Girl @pr_girl40 @hcldr With education, consistent communication and a call-to-action, patients can become well-versed in how to use the info as with other tech - i.e., we can access lab results & google range etc. #hcldr |
| Pat Rich @pat_health T2 Challenge of the digital divide is very real IMO. Many patients are not medically literate enough to benefit from accessing their own records to the same degree as others. #hcldr |
| Hayman ⭕️ @realHayman @Ctzen_Improver Thought you might say YESTERDAY! 🙂 We so need more EHR access. #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz This is offensive and merely an excuse to not do the work! #hcldr |
| Colin Hung @Colin_Hung @RandiDublin T2 I agree there isn't a direct negative impact BUT if we assume that everyone has access and we move the system that way, we do risk leaving this population behind. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @pat_health Yeah, and I'm nowhere near psychologically ready for winter! '-) #hcldr |
| Lewis Levy, MD, FACP @lewismlevy A2: Technology evolution will get us over the curve. 65% of Canadians have a smartphone. Mobile devices are now ubiquitous across demographics and mhealth can empower even the most vulnerable populations toward the data & care they need. #SDOH #Access2020 @Infoway #hcldr https://t.co/LmzTWQVQ0d |
| Mario Lopez @hemo_philiaMan @hcldr T2 I would suggest that individuals that aren't tech savvy has someone that they can designate with consent to access an individuals records. #hcldr |
| Enlightening Results 💡 @GraceCordovano @Colin_Hung @Brysk_ 1) Actual live-footage of patients & carepartners trying to get access to their medical records #hcldr https://t.co/7HdtQ5Fv7g |
| Isabel Jordan (She/Her) @seastarbatita While I don't think that online access will negatively impact people who aren't tech savvy/able to access, we have to recognize that not everyone will access records this way & make sure that health records are accessible in such a way that is appropriate for each patient #hcldr |
| Colin Hung @Colin_Hung RT @lewismlevy: A2: A2: Technology evolution will get us over the curve. 65% of Canadians have a smartphone. Mobile devices are now ubiquitous across demographics and mhealth can empower even the most vulnerable populations toward the data & care they need. #SDOH #Access2020 @Infoway #hcldr https://t.co/LmzTWQVQ0d |
| Beth Steckler (she/her) @purplemamabear Oh why such an excellent topic on the night I have to run errands!!!! Lurking as much as I can. #HCLDR |
| Infoway @Infoway @seastarbatita Patient access becomes especially important when you have a chronic condition and are seeing multiple providers. #HCLDR #ThinkDigitalHealth |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @RandiDublin: A2: A2: these are valid concerns bit why would it have a negative impact? #hcldr |
| Colin Hung @Colin_Hung RT @pat_health: T2 Challenge of the digital divide is very real IMO. Many patients are not medically literate enough to benefit from accessing their own records to the same degree as others. #hcldr |
| Jon McBride 🌴 @jamcbride RT @GraceCordovano: Here’s what access to my children’s records looks like in 2019 👇👇 Pediatrician closed his practice & this is what I got to coordinate my children’s care. I need to drive this 40 min to our new pediatricians practice so they can scan into their system. #hcldr #PtExo https://t.co/GCzH8SJHW7 |
| Colin Hung @Colin_Hung RT @StrongGirl51: T2 in our case we didn’t want or need the entire record it was just one conversation with the team who required a decision from us. I just asked for a printed copy. #hcldr |
| Maggie Keresteci 🇨🇦 @MaggieKeresteci T2. There should be a menu of options. I want full access to all my records in real time, someone else may way full access after doctor has seen them, or only lab results, or not at all. Each of these should be an option. Access terminals should be available in clinics etc #HCLDR |
| Colin Hung @Colin_Hung RT @NathanGrunewald: T2 Not an either/or question. Providing the option for patients access to their records electronically should be standard. All patient records, in a readable well organized form. Option for printed form always a backup (+free) option. #hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver T2 Many homeless people manage to have access to a cellphone. There are also public libraries where people can access their online EMR via internet. Seniors without cellphone or internet will often be in the company of a caregiver who has access to one or both. #HCLDR |
| Michael W. Roberts @michaelwroberts T2 I can see the validity of these concerns. These groups’ feedback should be a regular part of understanding how to improve online systems. #hcldr |
| Sally James @jamesian T2 I see people seizing tremendous advantage from info, including those navigating research directly into their rare diseases. Check out story here: https://t.co/UE8QXSFURY #hcldr @corrie_painter @broadinstitute |
| Infoway @Infoway RT @lewismlevy: @Infoway Yes. Access, understanding and informed action are key tenets to a patient-centric health system. #HCLDR #thinkdigitalhealth |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @hcldr T2: Access is a word that is causing confusion IMO. Anyone can gain access but turning that data into something useful #healthliteracy is a totally different problem. Why be ok with solving half the problem for the sake of giving access? 🤦🏾♂️ #hcldr |
| HCLDR Moderator @hcldr Repeating T2 One of the concerns often raised about online access to health records is that it will negatively impact people who may not be tech savvy or who are financially disadvantaged. What do you think about these concerns? #hcldr https://t.co/7RWXj5hPVv |
| Colin Hung @Colin_Hung RT @jamesian: T2 I see people seizing tremendous advantage from info, including those navigating research directly into their rare diseases. Check out story here: https://t.co/UE8QXSFURY #hcldr @corrie_painter @broadinstitute |
| Colin Hung @Colin_Hung RT @michaelwroberts: T2 I can see the validity of these concerns. These groups’ feedback should be a regular part of understanding how to improve online systems. #hcldr |
| Colin Hung @Colin_Hung RT @Ctzen_Improver: T2 Many homeless people manage to have access to a cellphone. There are also public libraries where people can access their online EMR via internet. Seniors without cellphone or internet will often be in the company of a caregiver who has access to one or both. #HCLDR |
| Laura Appel @lauradianeappel T2 Legit concern that most of us are not savvy enough to keep our records cyber secure. #hcldr |
| Dr Rashaad Bhyat @DrRBhyat RT @hcldr: Before heading out to lunch, why not read #hcldr blog "Why Patients Need Access to Their Health Information" via @DrRBhyat @bryski_ https://t.co/wgbs7xTeMX And get pumped up for Canada's Digital Health Week. Join #hcldr chat TONIGHT Nov 12th at 8:30pm ET #thinkdigitalhealth https://t.co/5aIdbDeh2T |
| Infoway @Infoway RT @lauradianeappel: T1 part deux Wish I had complete and accurate record of vaccinations. #hcldr |
| Beth Steckler (she/her) @purplemamabear T2 just to share an example. Daughter hospitalized last week. Very sick. I was concerned. I was told that they were checking the functioning of pancreas. She DOES NOT have one. Obviously issues w her chart but I don’t have access to see #HCLDR |
| Infoway @Infoway RT @hcldr: T2 One of the concerns often raised about online access to health records is that it will negatively impact people who may not be tech savvy or who are financially disadvantaged. What do you think about these concerns? #hcldr https://t.co/34xKWOWeWY |
| Joe Babaian 🇺🇦 @JoeBabaian @GraceCordovano Imagine. It's a literal attachment to the medical record. Ever try to search 1000's of pages of PDF in scanned format? Forget about it. Every analysis requiring 20 hours of reading? #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @hi_speakbox: T2. We cannot allow #digitalhealth to become a luxury product. Inspired by @UNICEFinnovate Digital access project https://t.co/GkQmWjB6dm. As we build health solutions, let's ensure all can access them. #hcldr #socialenterprise |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @pat_health Agree, but doesn't mean we shouldn't make it easy for patients to access and share their data for those with the knowledge to help. #hcldr |
| Sally James @jamesian @corrie_painter @broadinstitute For ppl who won't read the article, Corrie has helped pioneer saliva-based genetic sequencing for @MBC_Project and others, where pts directly consent to research. #patientsincluded #hcldr |
| Enlightening Results 💡 @GraceCordovano @Colin_Hung @Brysk_ 2) Actual footage of everyone else in the healthcare ecosystem that gets access to patient medical records seamlessly, electronically, bc of business associate agreements.... #hcldr https://t.co/M7CKix1yNY |
| Colin Hung @Colin_Hung RT @JoeBabaian: @GraceCordovano Imagine. It's a literal attachment to the medical record. Ever try to search 1000's of pages of PDF in scanned format? Forget about it. Every analysis requiring 20 hours of reading? #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @NathanGrunewald: @pat_health Agree, but doesn't mean we shouldn't make it easy for patients to access and share their data for those with the knowledge to help. #hcldr |
| Lewis Levy, MD, FACP @lewismlevy @GraceCordovano This is a reality for too many. Defies logic but is all too common. #thinkdigitalhealth #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @NathanGrunewald #Hcldr T2 An option for a printed version is a good idea for patients who don't want to deal with the tech... but who would print it for them?? If it's the patient, then you're forcing them to use to the tech to... avoid using the tech? Doubt MD's offices would want to do this... |
| Sue Woods MD MPH 💙 @SueWoods T2: worry less about those online than those for whom that’s a barrier. Data says it’s digital inclusion, not demographics, that prevent portal usage #PHR #EHR #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren RT @JoeBabaian: @GraceCordovano Imagine. It's a literal attachment to the medical record. Ever try to search 1000's of pages of PDF in scanned format? Forget about it. Every analysis requiring 20 hours of reading? #hcldr |
| Speakbox @hi_speakbox @lauradianeappel You alone aren't expected to keep your records secure. Cloud-based software can help with that. Person-centered data doesn't mean stranding you with all the responsibility of privacy/security. It just means making you fully informed. #hcldr |
 | PF Anderson @pfanderson@disabled.social @pfanderson RT @GraceCordovano: @Colin_Hung @Brysk_ 1) Actual live-footage of patients & carepartners trying to get access to their medical records #hcldr https://t.co/7HdtQ5Fv7g |
| Joe Babaian 🇺🇦 @JoeBabaian RT @SueWoods: T2: T2: worry less about those online than those for whom that’s a barrier. Data says it’s digital inclusion, not demographics, that prevent portal usage #PHR #EHR #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @hi_speakbox: @lauradianeappel You alone aren't expected to keep your records secure. Cloud-based software can help with that. Person-centered data doesn't mean stranding you with all the responsibility of privacy/security. It just means making you fully informed. #hcldr |
| Hayman ⭕️ @realHayman @SeanJMolloy @hcldr T2: Agree. Maybe 10 yrs ago, that could have been an excuse, but now there is no excuse when computers are cheap and the system can even start providing people with (ahem, secured Chrome) laptops. It will be smart business move as well, due to cost savings for both sides! #hcldr |
| Bingle @TheBingle T2 Yes, will hurt techless people. But, how much is Google knowing so many gonna impact things? Personally, I kinda like records you can hold. #hcldr |
| Pat Rich @pat_health From an unrelated meeting also in Canada today, but relevant to this chat I think #hcldr |
| Patient Critical Co-op @PatientCritical A2: the negative impact of digital health records is real--when it is not implemented well or made #interoperable. The records have to be written & shared in ways that reflect they belong to patients who must understand them. (@myopennotes gets this) #hcldr #thinkdigitalhealth |
| Colin Hung @Colin_Hung RT @realHayman: @SeanJMolloy @hcldr T2: @SeanJMolloy @hcldr T2: Agree. Maybe 10 yrs ago, that could have been an excuse, but now there is no excuse when computers are cheap and the system can even start providing people with (ahem, secured Chrome) laptops. It will be smart business move as well, due to cost savings for both sides! #hcldr |
| Infoway @Infoway Canada is one of the most connected nations in the world and 90% of Canadians have Internet access. Additionally, many Canadians face barriers to accessing care — and virtual care helps reduce those barriers. #HCLDR #thinkdigitalhealth T2 |
| Sally James @jamesian @GraceCordovano @Colin_Hung @Brysk_ Oh, you mean @Google https://t.co/bHjmaneW1z #hcldr |
 | Innovative by nature @Rosie_C_Cares RT @caparry: 79% of Canadians are interested in accessing their personal health information electronically #thinkdigitalhealth #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @lauradianeappel: T2 Legit concern that most of us are not savvy enough to keep our records cyber secure. #hcldr |
| Infoway @Infoway Digital health can also reduce marginalization for people living in remote communities or with mobility issues. #HCLDR #thinkdigitalhealth |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @TheBingle really? I think the documentation of healthcare should be as touchless as possible. #hcldr |
 | Kate Warnock @mkatewarnock RT @ZaynaKhayat: @hcldr @Colin_Hung T1. Do not have access to my health records, but that is ok as I am generally healthy. But: as a family caregiver and advocate for family who live far away, it is just bad clinical practice that we cannot all see the same information. Shocks me to be honest. #hcldr |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @pat_health: From an unrelated meeting also in Canada today, but relevant to this chat I think #hcldr |
| Bingle @TheBingle Better than winning the Lottery! #hcldr |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @michaelwroberts 😀this is an example of docs going the extra mile to ensure that pts and their care givers are properly prepared to self advocate. If only these records were built with a education first interface. Data access is good but it's a whole lot better when it serves a purpose. #hcldr |
| Dr. Randi Dublin @RandiDublin @MaggieKeresteci I thought my access was complete, but now I realize it’s mostly lab results. Do ppl have access to their doc’s notes? #hcldr |
 | Les @LBEBEN The size of the shoe box is a major impediment to interoperability of a health care record. My patients complain every day about our miserable lack of communication. Y'all are not listening. |
| Pat Rich @pat_health @Colin_Hung @JoeBabaian This is one of those #hcldr chats that's over before it's begun, right? |
| Enlightening Results 💡 @GraceCordovano T2) Let's be honest, the lack of #transparency surrounding human data science, data de-identification, data aggregation, AKA business as usual, poses significantly greater risks to human privacy, patient safety, dignity, & trust. #hcldr #PatientAdvocacy |
| Infoway @Infoway RT @Colin_Hung: @Brysk_ T1 The quest for your own records is like an epic tale ...many people have tried. Very few I find ever reach 100% #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @GraceCordovano @Colin_Hung @Brysk_ Just learned that Google Health might be able to now access pt records from Ascension Health system? W/o identifiers? Maybe? Maybe not? It's concerning! #hcldr |
| Colin Hung @Colin_Hung RT @CatchTheBaby: |
| Isabel Jordan (She/Her) @seastarbatita @NathanGrunewald @pat_health I think a lot about barriers. Having online access doesn't mean we need to stop thinking about the barriers people face. Not everyone has a computer to look at their health data, but they may need to book appointments. We need to make sure barriers are lowered. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @hi_speakbox @lauradianeappel That sounds really seductive. 7 Most Infamous Cloud Security Breaches - https://t.co/QWyVcTtTka Microsoft. ... Dropbox. ... National Electoral Institute of Mexico. ... LinkedIn. ... Home Depot. ... 6 Apple iCloud. ... Yahoo. #hcldr |
| Sue Woods MD MPH 💙 @SueWoods T1 - too timely to not point out how much others - not us - have data from our health records! #hcldr https://t.co/BUYDdIMzIy |
| Pat Rich @pat_health RT @SueWoods: T1 - too timely to not point out how much others - not us - have data from our health records! #hcldr https://t.co/BUYDdIMzIy |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @ZaynaKhayat @hcldr Even without access what would you want to gain from access to your records. I think we demand access without first questioning the value add by gaining access. #hcldr |
| Infoway @Infoway Some Canadian initiatives and programs support access to certain populations by providing smartphones or remote monitoring equipment to participants. #HCLDR #thinkdigitalhealth |
| Joe Babaian 🇺🇦 @JoeBabaian @pat_health @Colin_Hung I hope not! :) #hcldr |
| Kistein Monkhouse, MPA @KisteinM @hcldr T2: Providing folks with their #health records or the choice to have access may help to empower them. That said #digital #redlining has to also be addressed as a larger systemic #inequity 📝 #hcldr #HealthTech #healthequity #SDOH |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver @Infoway But only if infrastructure is there. Just ask anybody at Rankin Inlet or Iqaluit the cost for cellphone data or internet of any speed and reliability... #HCLDR |
| Dr. Gail Beck @GailYentaBeck T2 #hcldr I think that, since we must grant access to records, we cannot have barriers like cost or the ability to navigate technology. It it will be difficult for community physicians to overcome these barriers in small offices, so this is problematic. |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl RT @Ctzen_Improver: @Infoway But only if infrastructure is there. Just ask anybody at Rankin Inlet or Iqaluit the cost for cellphone data or internet of any speed and reliability... #HCLDR |
| Sally James @jamesian @MarioATX_MD @michaelwroberts Have a primary who dialed up "mayo clinic" shared decision making portal, and sat with me while we both accessed my data + parsed risk, both absolute and relative. She's a keeper. #hcldr |
| HCLDR Moderator @hcldr Really interesting tweets on #hcldr right now. Let’s get ready for T3 in just 1 minute! |
| Infoway @Infoway RT @seastarbatita: While I don't think that online access will negatively impact people who aren't tech savvy/able to access, we have to recognize that not everyone will access records this way & make sure that health records are accessible in such a way that is appropriate for each patient #hcldr |
| Michael W. Roberts @michaelwroberts @MarioATX_MD We’ve been very happy with our current doctor and his team. We had to switch from another doc in the same system that was not nearly as communicative. Definitely agree that education is critical! #hcldr |
| Patient Critical Co-op @PatientCritical Digital tools are new tools to implement healthcare. People still have to pick the right tools for the right use. Clinicians & patients need to engage in #shareddecisionmaking & #informedconsent before deciding what tools to use. At which point #thinkdigitalhealth #hcldr |
| Isabel Jordan (She/Her) @seastarbatita @Colin_Hung @RandiDublin There's always a risk of excluding people that have always been excluded. the only way to de-risk that is to look it in the face and intentionally look at barriers imho. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @SueWoods Wow, two Woodses on tonight's #hcldr chat - how cool is this??!!! |
| Infoway @Infoway RT @jamesian: T2 I see people seizing tremendous advantage from info, including those navigating research directly into their rare diseases. Check out story here: https://t.co/UE8QXSFURY #hcldr @corrie_painter @broadinstitute |
| Pat Rich @pat_health @GailYentaBeck And some Canadians are still paying hundreds of dollars or needing access to a CD player to get their records #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 I agree with @askdrfitz. Lack of on-line access is a cop-out. Even the marginalized of individuals now owns a smartphone. We have enough systems creating bias w/o adding on w/ this laziness. #hcldr |
| Colin Hung @Colin_Hung @bonniesheeren @GraceCordovano @Brysk_ Although I would argue that at least Google had a BAA with Ascension and has the proper processes around how to handle PHI. There are other companies, more nefarious ones that would concern me. #hcldr |
| Bingle @TheBingle Well, my view is To Each His Own. Can be on Platters. Could be on Paper. Could be on Cloud. #hcldr |
| Digital Salud @DigitalSalud1 RT @hcldr: T2 One of the concerns often raised about online access to health records is that it will negatively impact people who may not be tech savvy or who are financially disadvantaged. What do you think about these concerns? #hcldr https://t.co/34xKWOWeWY |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl RT @pfanderson: @hi_speakbox @lauradianeappel That sounds really seductive. 7 Most Infamous Cloud Security Breaches - https://t.co/QWyVcTtTka Microsoft. ... Dropbox. ... National Electoral Institute of Mexico. ... LinkedIn. ... Home Depot. ... 6 Apple iCloud. ... Yahoo. #hcldr |
| HCLDR Moderator @hcldr T3 Besides access to their records, what other digitally-enabled health service should be a priority for patients? #hcldr https://t.co/Bx2XZgYGtf |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl RT @seastarbatita: @NathanGrunewald @pat_health I think a lot about barriers. Having online access doesn't mean we need to stop thinking about the barriers people face. Not everyone has a computer to look at their health data, but they may need to book appointments. We need to make sure barriers are lowered. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: T3 Besides access to their records, what other digitally-enabled health service should be a priority for patients? #hcldr https://t.co/Bx2XZgYGtf |
 | Dennis Deruelle, MD @Drderuelle RT @bonniesheeren: Hi everyone! Bonnie Sheeren from Houston, TX-just back from the DC @ImproveDX conference! #hcldr https://t.co/Kv5BFvEGrW |
| Enlightening Results 💡 @GraceCordovano @hcldr T2) As a patient, it's your RIGHT to have access to your health information. Patients find ways to connect to sources to navigate their care. Carepartners play key roles as well. We need to stop fear mongering. Patients are heat seeking missiles for info #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian T2 #hcldr |
| Sue Woods MD MPH 💙 @SueWoods @hcldr T2 Make sure the comparison is the right one: being older, rural, low-income or not tech-savy: Having data vs. no data #hcldr |
| Infoway @Infoway RT @JoeBabaian: @GraceCordovano Imagine. It's a literal attachment to the medical record. Ever try to search 1000's of pages of PDF in scanned format? Forget about it. Every analysis requiring 20 hours of reading? #hcldr |
| Peggy White, RN, MN, FCAN @_HOBIC For people with chronic disease it will be of value for them to have access to information such as dyspnea scales and functional status scales so that they can be involved in their self care |
| Joe Babaian 🇺🇦 @JoeBabaian RT @GraceCordovano: @hcldr T2) As a patient, it's your RIGHT to have access to your health information. Patients find ways to connect to sources to navigate their care. Carepartners play key roles as well. We need to stop fear mongering. Patients are heat seeking missiles for info #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @Colin_Hung @GraceCordovano @Brysk_ Hope so! Are they informing the pts that Google is part of the mix? Not sure how I would feel about this? #hcldr |
| Colin Hung @Colin_Hung @ShereesePubHlth @askdrfitz T2 I agree. That shouldn't be a reason to hold back adoption of new tech. Imagine if Ford waited until all the horses were off the road before introducing cars? We need to figure out ways to bring everyone along #hcldr |
| Laura Appel @lauradianeappel @askdrfitz Was responding more to the last part. What to think of these concerns. Agree security should not stop access to info. I do think it’s a legit concern that being in control of health info sets up undue risk in the current environment. Need to solve for the human factor. #hcldr |
| Colin Hung @Colin_Hung RT @GraceCordovano: @hcldr T2) As a patient, it's your RIGHT to have access to your health information. Patients find ways to connect to sources to navigate their care. Carepartners play key roles as well. We need to stop fear mongering. Patients are heat seeking missiles for info #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @SandraWoodsMtl Sorry to hear that. I'm glad to run into you here. #hcldr |
| Colin Hung @Colin_Hung RT @seastarbatita: @Colin_Hung @RandiDublin There's always a risk of excluding people that have always been excluded. the only way to de-risk that is to look it in the face and intentionally look at barriers imho. #hcldr |
| Hayman ⭕️ @realHayman @hcldr T2: We need to lose the idea that our patients/us/loved ones 'can't handle the [truth]'. There are far scarier stuff on Dr. Google. So it's better if patients knew what they were truly dealing with. Besides, it's not like we or team won't be available to clarify / help. #hcldr |
 | Janet Kennedy @GetSocialHealth Good Evening, Everyone! T2: Having access to my health info, yes. Know how to read my annual blood work report? No. #HCLDR |
| Dr. Gail Beck @GailYentaBeck One of the elements my hospital's EHR has eliminated are a number of acronyms and abbreviations in reports - those compounded issues related to medical literacy. |
| Infoway @Infoway @JoeBabaian @GraceCordovano Electronic access is what's needed. #HCLDR #thinkdigitalhealth |
| Joe Babaian 🇺🇦 @JoeBabaian @jamcbride Hello, my friend! Hugs to you, Dad, all the family! :) #hcldr |
| Digital Salud @DigitalSalud1 RT @hcldr: T3 Besides access to their records, what other digitally-enabled health service should be a priority for patients? #hcldr https://t.co/Bx2XZgYGtf |
| Speakbox @hi_speakbox @hcldr A3. Supportive tech to make sense of their newly accessible data. Data alone doesn't drive better health, actions do. Data needs to be actionable. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @SandraWoodsMtl: @NathanGrunewald #Hcldr T2 An option for a printed version is a good idea for patients who don't want to deal with the tech... but who would print it for them?? If it's the patient, then you're forcing them to use to the tech to... avoid using the tech? Doubt MD's offices would want to do this... |
| Bingle @TheBingle T3 Appointments. Get access to open times.Saves a lot of everything #hcldr |
| Enlightening Results 💡 @GraceCordovano @RareCandace Collaboration is critical. Asking questions is a must. Access to info is essential to begin scratching the surface of coordinating ones care, making educated decisions. Let me know if I may be of any help. #hcldr |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @seastarbatita: @Colin_Hung @RandiDublin There's always a risk of excluding people that have always been excluded. the only way to de-risk that is to look it in the face and intentionally look at barriers imho. #hcldr |
| Patient Critical Co-op @PatientCritical T2: the idea that digitalhealth tools will oppress some patients is kind of funny. No, digital won't always be the right avenue for every patient, but by #regulating #interoperable health records we can eliminate much #medicalerror & costly waste/redundancy. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @MarioATX_MD @ZaynaKhayat @hcldr Maybe so, but I paid for it and deserve meaningful, actionable, shareable, reliable, easy access to my data. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl Just in time for #hcldr tonight ⤵️ "Google has quietly launched a project with one of the nation’s largest nonprofit health systems in which it has gained access to millions of patient records, including names and birth dates" ⤵️ Patients all consented?! https://t.co/3q7mM4xR2H |
| Bonnie C. Sheeren, BCPA @bonniesheeren @CatchTheBaby I agree about the acronyms! My Eye doctors records use OS, OD, OU! I know what that means, but most pts wouldn't! #hcldr |
 | Andrea @BraveBosom RT @GraceCordovano: T2) Let's be honest, the lack of #transparency surrounding human data science, data de-identification, data aggregation, AKA business as usual, poses significantly greater risks to human privacy, patient safety, dignity, & trust. #hcldr #PatientAdvocacy |
| Isabel Jordan (She/Her) @seastarbatita T3 this may *seem* like small potatoes, but after 17 yrs of waiting rooms I want a check in system that tells me how long I'm going to wait, lets me leave to go to a coffee shop, and come back when it's my appointment time 1/n #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz You’re singing my tune. Medical decision support, trusted health info, access to sub specialty care, remote monitoring... need I go on? |
 | Ziva Mann @MannZiva RT @seastarbatita: @Colin_Hung @RandiDublin There's always a risk of excluding people that have always been excluded. the only way to de-risk that is to look it in the face and intentionally look at barriers imho. #hcldr |
| Kistein Monkhouse, MPA @KisteinM @askdrfitz 💯 Precisely! Reframing the mindset around how to approach #healthequity is necessary...hence the need for #DiversityInDigital #HealthTech #hcldr |
| Pat Rich @pat_health T3 Being able to book a medical appointment electronically would be nice. #hcldr |
 | Valentin Prugnaud 🦊 @valentinprgnd RT @lauradianeappel: @JoeBabaian @GraceCordovano But the paper will generally be in a readable format...digital is not as long-term as hard copy. #hcldr |
| Peggy White, RN, MN, FCAN @_HOBIC RT @hi_speakbox: @hcldr A3. Supportive tech to make sense of their newly accessible data. Data alone doesn't drive better health, actions do. Data needs to be actionable. #hcldr |
| Ziva Mann @MannZiva RT @Colin_Hung: @RandiDublin T2 I agree there isn't a direct negative impact BUT if we assume that everyone has access and we move the system that way, we do risk leaving this population behind. #hcldr |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @pat_health: @GailYentaBeck And some Canadians are still paying hundreds of dollars or needing access to a CD player to get their records #hcldr |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @GailYentaBeck It's why my focus is helping community physicians build their medical practice with a virtual 1st foundation. We've been trying to incorporate new tech into an older system. Rebuild the system and allow each community physician to design their own workflow. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T3 Bioethics note ⤵️ Questions like this mustn't be viewed as "what... *should* be a priority for patients?" ↔️ But rather what *is* "a priority for patients" ⤵️ Word *should* shows subtle unintended medical paternalism; assumption you/we know what's best for patients https://t.co/gRTLuQDbXd |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T3 1/5 For me, as patient ✔ eBooking, or at least eRequest, for medical appointments ↔️ Spent 45 min trying to get through on phone yesterday, for annual f/up😖 On hold timed out ✔eReminders, e.g. go for lab tests (MD already wrote scrip) https://t.co/INF4GSM88y |
| Joe Babaian 🇺🇦 @JoeBabaian @Infoway @GraceCordovano Well electronic, searchable access with standardized fields and database integrity across the board. The data is effectively locked when we know one page of 1000 has labs we need to review and they are scanned in as SCAN001, 002, 003. #hcldr |
| Peggy White, RN, MN, FCAN @_HOBIC T3 the ability to self schedule appts would be beneficial #HCLDR |
| Ann-Marie O'Brien @StrongGirl51 T2 this concern is analogous to opposing grocery stores because financially disadvantaged people don’t have equitable access to food. #hcldr |
| Isabel Jordan (She/Her) @seastarbatita it may not feel important, but waiting in waiting rooms is so, so difficult for chronically ill people to wait in uncomfortable waiting rooms. Letting us be comfortable is *huge* #hcldr |
| PR Girl @pr_girl40 @hcldr T3 If I can order a pizza & operator can rhyme off my preferred toppings, address and delivery point, why do I, in a chaotic moment, have to recollect my/my loved one’s medical history from scratch, when time is of the essence? #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T3 Digital therapeutics, digital med devices, etc. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T3 2/5 As patient (cont'd) ✔eRenewal of prescriptions not requiring lab tests or specific medical exam (e.g. my asthma meds) ✔Ability to post a question, about medical instructions provided during appointments, would really help now that I have MCI; email, EME, text, ... https://t.co/YeVMcQJluF |
| Dr. Randi Dublin @RandiDublin A3: I love the feature of being able to message my health care providers. They respond promptly. Otherwise the barrier becomes waiting for a phone call or being on hold waiting to connect. #hcldr |
 | Shelagh Maloney @12Maloney RT @Colin_Hung: A view from the live tweetup room at #ThinkDigitalHealth for tonight's #hcldr chat. Hello @JoeBabaian !!! https://t.co/kwBcqDkuqV |
| Joe Babaian 🇺🇦 @JoeBabaian RT @pr_girl40: @hcldr T3 If I can order a pizza & operator can rhyme off my preferred toppings, address and delivery point, why do I, in a chaotic moment, have to recollect my/my loved one’s medical history from scratch, when time is of the essence? #hcldr |
| Colin Hung @Colin_Hung RT @SandraWoodsMtl: #hcldr T3 2/5 As patient (cont'd) ✔eRenewal of prescriptions not requiring lab tests or specific medical exam (e.g. my asthma meds) ✔Ability to post a question, about medical instructions provided during appointments, would really help now that I have MCI; email, EME, text, ... https://t.co/YeVMcQJluF |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @seastarbatita: it may not feel important, but waiting in waiting rooms is so, so difficult for chronically ill people to wait in uncomfortable waiting rooms. Letting us be comfortable is *huge* #hcldr |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @ZaynaKhayat @hcldr People make mistakes. Doctors are people. #hcldr |
| Ziva Mann @MannZiva Ziva from MA here, lurking tonight while I juggle to do lists. Wrapping up a day of humans, coaching, learning and grumping about character tests being given to middle schoolers. I love my data, but hello? risk of bias much? #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @Colin_Hung @ShereesePubHlth @askdrfitz Or the argument that we as patients can't keep our data safe enough to have it in our hands. Ford put locks on cars and there are still people who leave the keys in the ignition...users choose of security level. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @pr_girl40 @hcldr Exactly. Dominos can supply me (or anyone) with a complete detailed history of my toppings, yet if we want BP readings over the same time.....not so much. #hcldr |
| Infoway @Infoway @RareCandace Those with chronic conditions do develop not only literacy, but expertise. #HCLDR #thinkdigitalhealth |
| Patient Critical Co-op @PatientCritical When you use electronic booking it becomes so much more efficient to book & reschedule (and electronically communicating results and notes is itself a way to reduce error & redundancy). It empowers the patient to choose not take what's given. #hcldr #thinkdigitalhealth |
| Ziva Mann @MannZiva @Colin_Hung @Brysk_ I’ve tried it! Gave up. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @NathanGrunewald: @Colin_Hung @ShereesePubHlth @askdrfitz Or the argument that we as patients can't keep our data safe enough to have it in our hands. Ford put locks on cars and there are still people who leave the keys in the ignition...users choose of security level. #hcldr |
| Speakbox @hi_speakbox "not tech-savvy"... tech is increasingly teachable. My mother-in-law frequently uses Google Translate. #keepmovingforward #hcldr |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @RandiDublin: A3: A3: I love the feature of being able to message my health care providers. They respond promptly. Otherwise the barrier becomes waiting for a phone call or being on hold waiting to connect. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @NathanGrunewald: @Colin_Hung @ShereesePubHlth @askdrfitz Or the argument that we as patients can't keep our data safe enough to have it in our hands. Ford put locks on cars and there are still people who leave the keys in the ignition...users choose of security level. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T3 3/5 (cont'd) ✔ As a #raredisease patient with clinical research ethics experience, I'd like a way to securely link patients with relevant trials; allow one/two-click query to research team eg "Please contact patient ABC, who has disease X, to provide info on trial Y" https://t.co/utIYDrusPS |
| Colin Hung @Colin_Hung @pr_girl40 @hcldr T3 That's a book waiting to be written...what if @dominos ran your hospital...hmmmm #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz @Colin_Hung @ShereesePubHlth Exactly. Colin did you see my recent blog on this? #hcldr |
| HCLDR Moderator @hcldr RT @pr_girl40: @hcldr T3 If I can order a pizza & operator can rhyme off my preferred toppings, address and delivery point, why do I, in a chaotic moment, have to recollect my/my loved one’s medical history from scratch, when time is of the essence? #hcldr |
 | Rasu Shrestha MD MBA @RasuShrestha @BryonyWinn Value based care becomes more meaningful when innovative collaboration between providers and insurers strive to provide better health, hope and healing - for all! Thanks @BlueCrossNC @RahulRajkumar11 @BryonyWinn for your partnership! #BluePremier #AtriumHealthProud #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T3 4/5 (cont'd) ✔ Also as #raredisease patient, would have loved option to eConnect with others in my area who'd already been diagnosed with the same condition ↔️ Even an anonymous online forum⤵️ Ask if they knew of local assistance, services, etc. ➡️ Not to feel so alone https://t.co/4KYXOaAykU |
| HCLDR Moderator @hcldr Repeating T3 Besides access to their records, what other digitally-enabled health service should be a priority for patients? #hcldr https://t.co/KqpWcdIMqL |
| Joe Babaian 🇺🇦 @JoeBabaian RT @RasuShrestha: @BryonyWinn Value based care becomes more meaningful when innovative collaboration between providers and insurers strive to provide better health, hope and healing - for all! Thanks @BlueCrossNC @RahulRajkumar11 @BryonyWinn for your partnership! #BluePremier #AtriumHealthProud #hcldr |
| Maggie Keresteci 🇨🇦 @MaggieKeresteci T3. IMO it isn't just a question of access to as a passive recipient, it's a question of being part of the process, of being able to comment on, correct, contribute to, query. Would also like to have ability to schedule, choose services (like I do at Amazon or my bank) #HCLDR |
| Enlightening Results 💡 @GraceCordovano T3) Hands down a digital tool like @Waze for navigating your life-altering diagnosis. It's silly that we give someone a diagnosis without showing them the way. There are basics that could easily be covered & complemented w/#peerhealthsupport. #hcldr https://t.co/uFdPwyoOot |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T3 Access is useless if the data is so poorly presented/organized that it makes understanding it nearly impossible or helpful. Therefore, the best digital health service would be a universal patient record with standardized content and fields. #hcldr |
| Dr. Gail Beck @GailYentaBeck T3 #hcldr I'm worried that everyone gets fed up with me saying this but, please, could we somehow ensure that all of our health records are available to everyone who needs them to provide care. Most people have records in several places - we need one portal, one record. Please? |
| Infoway @Infoway Joy’s story is an example of how patients can be empowered to transform their life with access to digital tool. Thanks to a remote patient monitoring program, Joy now has her diabetes symptoms under control. https://t.co/4brLqmU6um #HCLDR #thinkdigitalhealth |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver T3 Make or change an appointment; appointment reminder; virtual chat with MD or RN Virtual visits; vaccine schedule reminder; keeping track of progress with my physiotherapy exercises; videos of how to do said exercises; general patient education resources #HCLDR |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @NathanGrunewald: T2 Not an either/or question. Providing the option for patients access to their records electronically should be standard. All patient records, in a readable well organized form. Option for printed form always a backup (+free) option. #hcldr |
| Speakbox @hi_speakbox @hi_speakbox my first-generation Canadian, mandarin speaking, mother-in-law #context #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @NathanGrunewald: T1 Some on my health record I would consider electronically accessible. Most of it not, including all my childhood records which were destroyed years ago. As such, I would state my care may impacted due to lack of historical knowledge. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @Colin_Hung @pr_girl40 @hcldr @dominos Wait, anyone else thinking of creating a #hcldr pizza?! |
| Lewis Levy, MD, FACP @lewismlevy A3: When data easily flows across the care team, constraints of time & location are freed. This expedited care delivery can bring together the best experts regardless of location...a real game changer for specialties like #mentalhealth. #virtualcare #hcldr |
| Sally James @jamesian @Infoway @RareCandace Big recognition of that at #peerhealthsupport by @SusannahFox https://t.co/NWyuV5bBKR Wish more clinicians recognized value, supported. #hcldr |
 | Gail Zahtz 🇮🇱 @GailZahtz Checking in so late to #hcldr Just got in. |
| PR Girl @pr_girl40 @Colin_Hung @hcldr @dominos Hmmm, indeed ...we could write it over pizza..anchovies, pls - say you love anchovies!! #hcldr |
| Ziva Mann @MannZiva Let’s start with the assumption that everyone has access to a computer. Is literate in English (nvmd med-jargon). Access is great. Access without design for the most vulnerable? A fraud. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @GraceCordovano: @Colin_Hung @Brysk_ 2) Actual footage of everyone else in the healthcare ecosystem that gets access to patient medical records seamlessly, electronically, bc of business associate agreements.... #hcldr https://t.co/M7CKix1yNY |
 | Leonardo matter @Leonardomatter5 RT @caparry: 79% of Canadians are interested in accessing their personal health information electronically #thinkdigitalhealth #hcldr |
| Dr. Gail Beck @GailYentaBeck You're right - we need this too. |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @jamesian: @GraceCordovano @Colin_Hung @Brysk_ Oh, you mean @Google https://t.co/bHjmaneW1z #hcldr |
| Colin Hung @Colin_Hung @bonniesheeren @GraceCordovano @Brysk_ @techguy and I had a discussion today on this very topic. Lots of things to unpack - the legality, the business impact, the desire to do the right thing #hcldr |
| Patient Critical Co-op @PatientCritical @Brysk_ Immunization records online would save millions in associates work and school costs, before factoring in improvements in care and other savings, error reductions. #hcldr #thinkdigitalhealth |
| Peggy White, RN, MN, FCAN @_HOBIC Agree there is a great need for standards across the health care system |
| Enlightening Results 💡 @GraceCordovano @bonniesheeren @Colin_Hung @Brysk_ In case you were wondering how I feel about this #hcldr https://t.co/zl6lzpS6AH |
| Infoway @Infoway 76% of Canadians are interested in viewing their current prescriptions and medication history online. #HCLDR #thinkdigitalhealth |
| Gail Zahtz 🇮🇱 @GailZahtz Have I missed anyone talking about how many opportunities we're going to be seeing in remote patient monitoring? #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @SueWoods: T1 - too timely to not point out how much others - not us - have data from our health records! #hcldr https://t.co/BUYDdIMzIy |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T3 5/5 = End! Patients should know their data will ✔ Be fully protected from hackers, viruses, etc ✔ Not be shared, sold, otherwise used for profit ↔️ Any research use should require explicit consent -despite 'minimal risk' ethics board review- to ensure public trust https://t.co/AXTCjBl0Q8 |
| Infoway @Infoway 76% of Canadians are interested in sending an electronic prescription renewal request. #HCLDR #thinkdigitalhealth |
 | Bryony Winn @BryonyWinn RT @RasuShrestha: @BryonyWinn Value based care becomes more meaningful when innovative collaboration between providers and insurers strive to provide better health, hope and healing - for all! Thanks @BlueCrossNC @RahulRajkumar11 @BryonyWinn for your partnership! #BluePremier #AtriumHealthProud #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @pr_girl40: @hcldr T3 If I can order a pizza & operator can rhyme off my preferred toppings, address and delivery point, why do I, in a chaotic moment, have to recollect my/my loved one’s medical history from scratch, when time is of the essence? #hcldr |
| Infoway @Infoway 75% of Canadians are interested in e-booking medical appointments. #HCLDR #thinkdigitalhealth |
| Colin Hung @Colin_Hung RT @Infoway: Joy’s story is an example of how patients can be empowered to transform their life with access to digital tool. Thanks to a remote patient monitoring program, Joy now has her diabetes symptoms under control. https://t.co/4brLqmU6um #HCLDR #thinkdigitalhealth |
| Kistein Monkhouse, MPA @KisteinM @JoeBabaian @pr_girl40 @hcldr 💯 My exact thoughts! #hcldr |
| Laura Appel @lauradianeappel T3 Revisiting my goal of a system for knowing when the doc is rounding. Many hours waiting from early to midmorning to catch the moments of time with the person directing care. Not assigning blame. Looking for better intel. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @NatriceR @GailYentaBeck @seastarbatita @JoeBabaian I think we must be close to record-breaking here, too, for this time of year! #hcldr |
| Infoway @Infoway 75% of Canadians are interested in receiving electronic reminders for medical appointments. #HCLDR #thinkdigitalhealth |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @_HOBIC Absolutely. Beneficial for all. I'm just worried that we are demanding access without first questioning what we can gain from that access. I want action to come about from access. True health literacy so that pts can self advocate but also build stronger relationships. #hcldr |
| Infoway @Infoway RT @pat_health: T3 Being able to book a medical appointment electronically would be nice. #hcldr |
| Sally James @jamesian @Infoway Above and beyond that - diabetes pioneer @danamlewis and others created #artificialpancreas tool and #wearenotwaiting movement. https://t.co/BwYVyJwUQ7 #hcldr |
| Digital Salud @DigitalSalud1 Además del acceso a sus registros, ¿qué otro servicio de salud habilitado digitalmente debería ser una prioridad para los pacientes? #hcldr By @hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @KisteinM @pr_girl40 @hcldr I always LIKE your thoughts my friend! #hcldr |
 | Dr. Kelly Resco-Summers, DNP, RN @KRescoSummers @hcldr T3: #hcldr age /income / perceived social status are NOT valid reasons to deny electronic access to records/care. It’s prejudicial and not proven by data (Pew Report). Yet it’s marketed as concierge service to young/middle age/ insured/ middle/upper class. Time to check our bias |
| Shelagh Maloney @12Maloney T3. Would lice to know where I am on the wait list or referral list. #hcldr |
| Infoway @Infoway RT @SandraWoodsMtl: #hcldr T3 Bioethics note ⤵️ Questions like this mustn't be viewed as "what... *should* be a priority for patients?" ↔️ But rather what *is* "a priority for patients" ⤵️ Word *should* shows subtle unintended medical paternalism; assumption you/we know what's best for patients https://t.co/gRTLuQDbXd |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @ACCESS2022 T3 #Hcldr Even at a private medical/vaccination clinic in Montreal, they're still handing out paper vaccination booklets '-( |
| Hayman ⭕️ @realHayman @GilmanFamily @SeanJMolloy @hcldr Point taken. However, data these days can be sent via multiple devices. Systems could be designed to provide you pertinent information via phone. If that's not also accessible, people can be provided opportunities to log in at nearby clinics, libraries, or govt bldgs... #hcldr |
 | Susan Shaw Wear a Mask Save a Life @drsusanshaw RT @Infoway: 75% of Canadians are interested in receiving electronic reminders for medical appointments. #HCLDR #thinkdigitalhealth |
| Susan Shaw Wear a Mask Save a Life @drsusanshaw RT @Infoway: 75% of Canadians are interested in e-booking medical appointments. #HCLDR #thinkdigitalhealth |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @SandraWoodsMtl: #hcldr T3 5/5 = End! Patients should know their data will ✔ Be fully protected from hackers, viruses, etc ✔ Not be shared, sold, otherwise used for profit ↔️ Any research use should require explicit consent -despite 'minimal risk' ethics board review- to ensure public trust https://t.co/AXTCjBl0Q8 |
| Ziva Mann @MannZiva @Colin_Hung @bonniesheeren @GraceCordovano @Brysk_ Agreed! Having the data is one thing. What you do with it? Scares me. Just think about how algorithms are used to calculate risks for different populations. What data are they using? How well do they understand context? is bias taken into account? #hcldr |
| Susan Shaw Wear a Mask Save a Life @drsusanshaw RT @Infoway: 76% of Canadians are interested in sending an electronic prescription renewal request. #HCLDR #thinkdigitalhealth |
| Infoway @Infoway @SandraWoodsMtl This is why we survey and engage with patients. #HCLDR #thinkdigitalhealth |
| Susan Shaw Wear a Mask Save a Life @drsusanshaw RT @Infoway: 76% of Canadians are interested in viewing their current prescriptions and medication history online. #HCLDR #thinkdigitalhealth |
| Gail Zahtz 🇮🇱 @GailZahtz T3: I love the idea we've talked about before of being able to track labs on our phones like we can track Amazon packages. #hcldr |
| Pat Rich @pat_health @KRescoSummers @hcldr Happening in Canada too. Public system usually does not cover virtual doctor visits but if you pay you can get them instantly #hcldr |
| Colin Hung @Colin_Hung @RareCandace And in both countries ACCESS doesn't necessarily mean "useful" but that's a whole other ball of yarn. #hcldr |
| Patient Critical Co-op @PatientCritical Beyond booking, imagine the time and money that codd be saved by patients on travel, work/school absences, parking and also significant anxiety, if a doctor sent a text when they would be running over a half or an hour (or more) late. #hcldr #thinkdigitalhealth |
| Joe Babaian 🇺🇦 @JoeBabaian @SandraWoodsMtl @ACCESS2022 You. Are. Kidding. Right? #hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver T3 Like Domino's, it would be awesome to track progress of a loved ones surgery #HCLDR |
| Speakbox @hi_speakbox @MannZiva 100% Ziva! User experience is critical to the success of digital health. Language support is at the top of that list of needs as well. #hcldr |
| Sally James @jamesian @michaelwroberts @MarioATX_MD Growing number of pts would find it "expected" these days - shared decision-making is default. Should be. #hcldr |
| Lewis Levy, MD, FACP @lewismlevy A3: Connected data and care teams facilitate better connections between the mind and body. Caring for the "whole person" is essential to creating a culture rooted in quality care & we cannot succeed if access is a barrier. #mentalhealth #virtualcare #thinkdigitalhealth #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @Brysk_ In the MD., we have immunet. I'm surprised more people aren't aware of it. Most states have a registry where you can access your records. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @lewismlevy: A3: A3: Connected data and care teams facilitate better connections between the mind and body. Caring for the "whole person" is essential to creating a culture rooted in quality care & we cannot succeed if access is a barrier. #mentalhealth #virtualcare #thinkdigitalhealth #hcldr |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @NathanGrunewald @ZaynaKhayat @hcldr Totally agree. But what action will someone without prior knowledge or minimal education gain from access? Access alone isn't enough. #hcldr |
 | Randy Luckham, PharmD 🇨🇦 @horsepharmer @Brysk_ @ACCESS2022 T3: pharmacists hesitating because of potential transaction fees. Need to clear that up. And off the table #HCLDR |
| Dr. Gail Beck @GailYentaBeck It is record - breaking, but that doesn't mean it's a good thing. |
| Infoway @Infoway RT @PatientCritical: @Brysk_ Immunization records online would save millions in associates work and school costs, before factoring in improvements in care and other savings, error reductions. #hcldr #thinkdigitalhealth |
| Kistein Monkhouse, MPA @KisteinM @jamesian Hi Sally! Headed to #SEA later this week. Great photo😀 #hcldr |
| Dr. Kelly Resco-Summers, DNP, RN @KRescoSummers @hcldr #Hcldr. Kelly, Informaticist, Washington (state). |
| Ziva Mann @MannZiva @hi_speakbox And comprehension. Usability. Because, really - how we got this far without UX is mind boggling. #hcldr |
| Colin Hung @Colin_Hung @SandraWoodsMtl @ACCESS2022 T3 We had a presentation on that today at #ThinkDigitalHealth I swear there is a secret lobby group that sells those yellow immunization booklets that's somehow keeping them in circulation #hcldr |
 | LifeScan Diabetes Institute @LifeScanDiabInt RT @Infoway: Joy’s story is an example of how patients can be empowered to transform their life with access to digital tool. Thanks to a remote patient monitoring program, Joy now has her diabetes symptoms under control. https://t.co/4brLqmU6um #HCLDR #thinkdigitalhealth |
| Joe Babaian 🇺🇦 @JoeBabaian @lewismlevy Lewis, you said it right there. The whole person is what matters and everything revolves around that. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @Infoway #hcldr And you have a bioethicist involved in survey development, right, to ensure patients rights are respected even in the formulation of the questions? https://t.co/dB6WcgpOq1 |
| Sally James @jamesian @KRescoSummers @hcldr Welcome to the chat, fellow WASH person. #hcldr |
 | Mental Health @MentalHRetweet RT @lewismlevy: A3: A3: Connected data and care teams facilitate better connections between the mind and body. Caring for the "whole person" is essential to creating a culture rooted in quality care & we cannot succeed if access is a barrier. #mentalhealth #virtualcare #thinkdigitalhealth #hcldr |
| Hayman ⭕️ @realHayman @GilmanFamily @SeanJMolloy @hcldr ... I can't imagine stress all people go through but can only imagine based on experiences. Our system should also subsidize or provide the equipment. imagine the savings in time and travel if such devices were available to a busy caregiver. ps. Mothers are godly! #hcldr |
| Pat Rich @pat_health @horsepharmer @Brysk_ @ACCESS2022 Hidden and big issue, I think. #hcldr |
| HCLDR Moderator @hcldr Almost time for our final question. Let’s get ready for T4 in just 1 minute! #hcldr |
| Infoway @Infoway RT @GailZahtz: T3: T3: I love the idea we've talked about before of being able to track labs on our phones like we can track Amazon packages. #hcldr |
| LifeScan Diabetes Institute @LifeScanDiabInt RT @RasuShrestha: @BryonyWinn Value based care becomes more meaningful when innovative collaboration between providers and insurers strive to provide better health, hope and healing - for all! Thanks @BlueCrossNC @RahulRajkumar11 @BryonyWinn for your partnership! #BluePremier #AtriumHealthProud #hcldr |
| Dr. Randi Dublin @RandiDublin @ACCESS2022 Is that because lab results are the only accessible point of data? #hcldr |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @realHayman: @GilmanFamily @SeanJMolloy @hcldr ... I can't imagine stress all people go through but can only imagine based on experiences. Our system should also subsidize or provide the equipment. imagine the savings in time and travel if such devices were available to a busy caregiver. ps. Mothers are godly! #hcldr |
| Bingle @TheBingle Ziva always on it! #hcldr |
| Sally James @jamesian @KisteinM Hey, enjoy our .. liquid sunshine. Thanks. #hcldr |
| Lewis Levy, MD, FACP @lewismlevy RT @JoeBabaian: @lewismlevy Lewis, you said it right there. The whole person is what matters and everything revolves around that. #hcldr |
| Enlightening Results 💡 @GraceCordovano @Colin_Hung @bonniesheeren @Brysk_ Clearly data is available electronically & is #interoperable as it was sourced from 21 states, 2,600 hospitals, drs’ offices. Forget signing #HIPAA forms. Patients should demand BAAs to gain access! We've just been signing the wrong form!! #PatientAdvocacy #hcldr #UnblockHealth https://t.co/9oHMGO8bTA |
| Michael W. Roberts @michaelwroberts Love this point! |
| Infoway @Infoway RT @PatientCritical: Beyond booking, imagine the time and money that codd be saved by patients on travel, work/school absences, parking and also significant anxiety, if a doctor sent a text when they would be running over a half or an hour (or more) late. #hcldr #thinkdigitalhealth |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @GailYentaBeck Completely agree, Gail! Far too cold & snowy for this time of year! #hcldr https://t.co/AWJ9Od62PD |
| Kistein Monkhouse, MPA @KisteinM @JoeBabaian @pr_girl40 @hcldr Peeking in from afar. Sending ❤️#hcldr 😊 |
 | Kelly English @steveston_gal RT @seastarbatita: it may not feel important, but waiting in waiting rooms is so, so difficult for chronically ill people to wait in uncomfortable waiting rooms. Letting us be comfortable is *huge* #hcldr |
| Colin Hung @Colin_Hung T3 This is a fantastic request...and something that if @dominos ran healthcare you would know! Right @pr_girl40 ? cc @12Maloney |
| HCLDR Moderator @hcldr T4 If health data is universally accessible by patients, providers, payers with proper security and authorization, how would healthcare be different? #hcldr https://t.co/MnxiM9m54D |
| Joe Babaian 🇺🇦 @JoeBabaian @Ctzen_Improver @SandraWoodsMtl @ACCESS2022 I have never even SEEN a paper booklet. Sobering. When we get a printout here in Texas for camp, sports, etc., it directs the authorized person to access the database for updates.... #hcldr |
| Colin Hung @Colin_Hung RT @hcldr: T4 If health data is universally accessible by patients, providers, payers with proper security and authorization, how would healthcare be different? #hcldr https://t.co/MnxiM9m54D |
| Infoway @Infoway @PatientCritical Four in ten Canadians are interested in having a virtual visit with their doctor. #HCLDR #thinkdigitalhealth |
| Laura Appel @lauradianeappel @valentinprgnd @JoeBabaian @GraceCordovano Not defending hard copy. More critical of relatively short term readability of some of our digital formats. #hcldr |
| Ann-Marie O'Brien @StrongGirl51 T3 I’d like patients to be able to track referrals to other healthcare and social service providers. I’d like LTC applications and waiting lists to be accessible online. #hcldr |
| Sally James @jamesian @Colin_Hung @SandraWoodsMtl @ACCESS2022 Same company that sells fax machines, and ink. #hcldr #yellowbooklets |
| Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: T4 If health data is universally accessible by patients, providers, payers with proper security and authorization, how would healthcare be different? #hcldr https://t.co/MnxiM9m54D |
| Dr Rashaad Bhyat @DrRBhyat T3: Unfortunately Canada lags behind other nations re: patient access to a broad suite of virtual health services. @sacha_bhatia & @willfalk recently published an overview of reasons why and possible solutions. https://t.co/sVetL996Im @Infoway @ACCESS2022 #HCLDR |
| Maggie Keresteci 🇨🇦 @MaggieKeresteci Truth bomb. #Patients and #caregivers can handle the truth |
| Digital Salud @DigitalSalud1 Una de las preocupaciones planteadas sobre el acceso en línea a los registros de salud es que impactará negativamente a las personas que pueden no ser conocedoras de la tecnología o que están en desventaja financiera. ¿Qué opinas de estas preocupaciones? #hcldr By @hcldr |
| Kistein Monkhouse, MPA @KisteinM @jamesian Will do thank you 🌧😊 #hcldr |
| Enlightening Results 💡 @GraceCordovano @Colin_Hung @RareCandace Ugh we saw that when hospital price lists needed to be posted & "accessible"....mostly garbage. Completely insulting to consumers & patients. #hcldr |
| Ziva Mann @MannZiva What she said. Not just accessible, within reach. Not just within reach, understandable. Navigable. I’m a broken record tonight...but once more, with feeling: get some UX design, stat! #hcldr |
| Ziva Mann @MannZiva RT @pr_girl40: @hcldr T3 If I can order a pizza & operator can rhyme off my preferred toppings, address and delivery point, why do I, in a chaotic moment, have to recollect my/my loved one’s medical history from scratch, when time is of the essence? #hcldr |
| Gail Zahtz 🇮🇱 @GailZahtz @GraceCordovano @Colin_Hung @bonniesheeren @Brysk_ Connected the the issue of patients having access, there seems to have been a block based on the fact that patients had to give clear consent everytime there was "telehealth." The new CMS final ruling on 2020 codes allows for consent only 1ce a year. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @JoeBabaian @ACCESS2022 Sorry, Joe! Got 2 vaccinations this week, and asked whether there was any eOption = No 😖 #hcldr https://t.co/S1JIeFo6Ml |
| Patient Critical Co-op @PatientCritical Hey #hcldr can we be honest? It's not about tools...it's about political & professional will (& public support) for #regulation, #strategy & hard DATES for adoption. @patientcritical has been in this chat for years on#thinkdigitalhealth We still haven't even #axethefax yet. |
| Sally James @jamesian T4 As I posted earlier, patients are directing research and raising the $$ and finding treatments for rare diseases #hcldr https://t.co/cMWc4fgpmD What would be different? More success. |
| Infoway @Infoway Access to medication history and a list of current prescriptions is important for patient safety. #HCLDR #thinkdigitalhealth |
| Peggy White, RN, MN, FCAN @_HOBIC If pts were able to document using digital tech their symptoms in the home then connect with their clinician then they could be more engaged in their care and managing their symptoms |
| Dr. Randi Dublin @RandiDublin @Brysk_ @PatientCritical Patients are the leaders of their healthcare teams. #hcldr |
| Infoway @Infoway RT @DrRBhyat: T3: Unfortunately Canada lags behind other nations re: T3: Unfortunately Canada lags behind other nations re: patient access to a broad suite of virtual health services. @sacha_bhatia & @willfalk recently published an overview of reasons why and possible solutions. https://t.co/sVetL996Im @Infoway @ACCESS2022 #HCLDR |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @hcldr T3: I think medical records should be patient controlled and access should be given to HCOs and providers. However the raw data or metrics should be managed by the provider. This requires two different interfaces. What the patient owns and what the provider manages. #hcldr |
| Speakbox @hi_speakbox biased, but let's remember #mentalhealth in all this. Access to data/virtual supports could lift thousands out of illness. #hcldr |
| Ben Moscovitch @benmoscovitch T4 Access is a critical first step. Use is the second. Patient use of data to guide their care. Provider use to coordinate care. Other uses to build a learning health care system that makes care safer, higher quality, lower cost, more personalized, etc #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz Well it’d be much more efficient with less redundancy and more coordination! #hcldr |
| Infoway @Infoway RT @Colin_Hung: @SandraWoodsMtl @ACCESS2022 T3 We had a presentation on that today at #ThinkDigitalHealth I swear there is a secret lobby group that sells those yellow immunization booklets that's somehow keeping them in circulation #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T4 No more unanswered questions like: ☑ What was the plan? ☑ What are my meds? ☑ What was my pathology report? ☑ What has my glucose/blood pressure/etc trend been? ☑ list goes on and on... #hcldr |
| Gail Zahtz 🇮🇱 @GailZahtz Ultimately it seems that access to health data means that patients would be getting earlier treatment for symptoms which should increase outcomes and reduce hospitalizations. #hcldr |
| Colin Hung @Colin_Hung RT @DrRBhyat: T3: Unfortunately Canada lags behind other nations re: T3: Unfortunately Canada lags behind other nations re: patient access to a broad suite of virtual health services. @sacha_bhatia & @willfalk recently published an overview of reasons why and possible solutions. https://t.co/sVetL996Im @Infoway @ACCESS2022 #HCLDR |
| Michael W. Roberts @michaelwroberts T4 At a minimum, we’d hopefully see more solutions that take the entire history of the patient into consideration. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @NathanGrunewald: T4 No more unanswered questions like: ☑ What was the plan? ☑ What are my meds? ☑ What was my pathology report? ☑ What has my glucose/blood pressure/etc trend been? ☑ list goes on and on... #hcldr |
 | ACCESS 2022 @ACCESS2022 RT @hi_speakbox: biased, but let's remember #mentalhealth in all this. Access to data/virtual supports could lift thousands out of illness. #hcldr |
| Dr. Randi Dublin @RandiDublin A4: I think patients would feel more empowered and may take a more active role in their own care. #hcldr |
| Hayman ⭕️ @realHayman @GilmanFamily @SeanJMolloy @hcldr fully agree. Personalized care; each person heals and lives differently. Their engagement in important for any 'success'. (And by success I mean both the patient's health and the system's sustainability.) #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @MaggieKeresteci @Ctzen_Improver @SandraWoodsMtl @ACCESS2022 Those old savings passbooks! #hcldr |
| Pat Rich @pat_health T4 Healthcare would be very, very different. So different that is not possible to know if it would be better, cheaper or more patient-centred. #hcldr |
| Ziva Mann @MannZiva T4: less waste, more time spent either explaining the records to patients in office - or improving the records/way notes are done, to be understood by lay persons. Result? Patients and families with more capacity to understand, engage in and partner for their health #hcldr |
| Infoway @Infoway RT @hcldr: T4 If health data is universally accessible by patients, providers, payers with proper security and authorization, how would healthcare be different? #hcldr https://t.co/MnxiM9m54D |
| Enlightening Results 💡 @GraceCordovano T4) Universal access to all health information, with patient education on human data science, & privacy will be the most transformational & eye-opening #PtEng strategy healthcare has seen. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @RandiDublin: A4: A4: I think patients would feel more empowered and may take a more active role in their own care. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @NathanGrunewald: T4 No more unanswered questions like: ☑ What was the plan? ☑ What are my meds? ☑ What was my pathology report? ☑ What has my glucose/blood pressure/etc trend been? ☑ list goes on and on... #hcldr |
| PR Girl @pr_girl40 @hcldr T4 - more information; less intimidation=fewer communication breakdowns & keeps families on same page...Less ‘he said/she said’ interpretation & broken telephone for more seamless & timely care for less waste, more empowerment, #quality & less resentment. Better outcomes #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @benmoscovitch: T4 Access is a critical first step. Use is the second. Patient use of data to guide their care. Provider use to coordinate care. Other uses to build a learning health care system that makes care safer, higher quality, lower cost, more personalized, etc #hcldr |
| Gail Zahtz 🇮🇱 @GailZahtz @ACCESS2022 Do you have examples? #hcldr |
| Lewis Levy, MD, FACP @lewismlevy @JoeBabaian Thank you. Yes, a goal of comprehensive quality care should be at the core. #hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver @JoeBabaian @MaggieKeresteci @SandraWoodsMtl @ACCESS2022 We have not even managed to #AxeTheFax. Who are we kidding here? Really got to up our game and get with the digital era! #HCLDR |
| Peggy White, RN, MN, FCAN @_HOBIC It is so important that pts with chronic diseases have access to clinical documentation beyond physician records |
| Colin Hung @Colin_Hung RT @RandiDublin: A4: A4: I think patients would feel more empowered and may take a more active role in their own care. #hcldr |
| Janet Kennedy @GetSocialHealth T5: Not as much as one might hope. We have access to lots of financial info but does that mean we are balancing our accounts or doing a good job at retirement planning? Sadly, access to info does not mean understanding or use of info. #HCLDR |
| Isabel Jordan (She/Her) @seastarbatita The intellectual load on pts & caregivers to remember & haul around whatever health record they've been able to cobble together would be lightened. This *can not* be under-valued. The guilt I feel for not having a better record for my son is difficult to describe #hcldr #mPTSD |
| Colin Hung @Colin_Hung RT @NathanGrunewald: T4 No more unanswered questions like: ☑ What was the plan? ☑ What are my meds? ☑ What was my pathology report? ☑ What has my glucose/blood pressure/etc trend been? ☑ list goes on and on... #hcldr |
| Infoway @Infoway @hcldr We would be well on our way to a truly patient-centric health system. #HCLDR #thinkdigitalhealth |
| Enlightening Results 💡 @GraceCordovano @techguy @Colin_Hung @bonniesheeren @Brysk_ Please keep me posted! Dying to hear the discussion. #hcldr |
| Ester Gritsaeva @estergritsaeva @hcldr Patients would be able to monitor their own health and be accountable for their everyday choices: nourishment, food, medicine, working out. Healthcare would be accessible and efficient. #hcldr |
| Colin Hung @Colin_Hung RT @GraceCordovano: T4) Universal access to all health information, with patient education on human data science, & privacy will be the most transformational & eye-opening #PtEng strategy healthcare has seen. #hcldr |
| Michael W. Roberts @michaelwroberts @pr_girl40 @hcldr That “he said/she said” point is so critical. If we can’t get through a business meeting without needing that kind of recap for clarity, how can we possibly deal with medical scenarios? #hcldr |
| Colin Hung @Colin_Hung RT @MannZiva: T4: T4: less waste, more time spent either explaining the records to patients in office - or improving the records/way notes are done, to be understood by lay persons. Result? Patients and families with more capacity to understand, engage in and partner for their health #hcldr |
| Infoway @Infoway RT @StrongGirl51: T3 I’d like patients to be able to track referrals to other healthcare and social service providers. I’d like LTC applications and waiting lists to be accessible online. #hcldr |
| Speakbox @hi_speakbox @michaelwroberts agreed! having whole health data means public/providers are adequately informed in their decision making. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @JoeBabaian @Ctzen_Improver @ACCESS2022 Worst part, Joe? It's a government document, provided - in hard copy only - to all vaccination centres in the province ⤵️ Unlikely to change anytime soon 😒#hcldr https://t.co/55dVmtcahj |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @hcldr T4: Here is how it would be different. #hcldr https://t.co/Lq1nwoELvM |
| Joe Babaian 🇺🇦 @JoeBabaian @benmoscovitch What you just said! :) "Learning health care system" is such an amazing goal. #hcldr |
| Colin Hung @Colin_Hung @MannZiva T4 Love the comment about less waste Ziva. So true! #hcldr |
| Laura Appel @lauradianeappel T4 Small thing but I would really like to stop filling out and updating hard copy forms of my identifying information, scrips, absent health conditions, etc. #hcldr |
| Dr. Gail Beck @GailYentaBeck #hcldr T4 The more information we have as care providers and patients, the better the decision and the better the outcome. https://t.co/sjSW2oWx9h |
| Joe Babaian 🇺🇦 @JoeBabaian RT @SandraWoodsMtl: @JoeBabaian @Ctzen_Improver @ACCESS2022 Worst part, Joe? It's a government document, provided - in hard copy only - to all vaccination centres in the province ⤵️ Unlikely to change anytime soon 😒#hcldr https://t.co/55dVmtcahj |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver RT @NathanGrunewald: T4 No more unanswered questions like: ☑ What was the plan? ☑ What are my meds? ☑ What was my pathology report? ☑ What has my glucose/blood pressure/etc trend been? ☑ list goes on and on... #hcldr |
| Peggy White, RN, MN, FCAN @_HOBIC It is also about clinicians using standards so that we are all communicating the same info - support interoperability |
| PR Girl @pr_girl40 RT @michaelwroberts: @pr_girl40 @hcldr That “he said/she said” point is so critical. If we can’t get through a business meeting without needing that kind of recap for clarity, how can we possibly deal with medical scenarios? #hcldr |
| Dr. Gail Beck @GailYentaBeck RT @NathanGrunewald: T4 No more unanswered questions like: ☑ What was the plan? ☑ What are my meds? ☑ What was my pathology report? ☑ What has my glucose/blood pressure/etc trend been? ☑ list goes on and on... #hcldr |
| Colin Hung @Colin_Hung @lauradianeappel T4 Sometimes the smallest things can lead to the biggest smiles #hcldr |
| Lewis Levy, MD, FACP @lewismlevy A4: WHEN data is universally accessible by the entire care team, healthcare will truly be the team sport that it should be...with everyone seamlessly working together to achieve better outcomes for patents & healthier populations. #Access2020 #pophealth #thinkdigital #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T4 Hopefully would help with #healthliteracy, e.g. disease-specific video/podcast tutorials It can be dangerous to assume that it will ever be universal, because some patients will *choose* not to have access to their health data ↔️ Must be patient's prerogative to choose! https://t.co/Yj304CrTv5 |
| Jon McBride 🌴 @jamcbride @JoeBabaian 🙏🤗 #hcldr |
| Gail Zahtz 🇮🇱 @GailZahtz T4: In the ideal scenario, we open up data and simultaneously connect with solutions to filtering the data for better medical decisions. #hcldr |
| Isabel Jordan (She/Her) @seastarbatita T4 I fundamentally believe in flatenning the power hierarchies b/w pts & providers. Until we (pts & caregivers) are give equal access to data, it simply isn't possible. True shared decision making isn't possible. Equal access is a game changer #hcldr |
| Sally James @jamesian @Brysk_ +1000 Rights. #patientsincluded #hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver RT @MannZiva: Let’s start with the assumption that everyone has access to a computer. Is literate in English (nvmd med-jargon). Access is great. Access without design for the most vulnerable? A fraud. #hcldr |
| Maggie Keresteci 🇨🇦 @MaggieKeresteci T4. Patients and their caregivers would be able to truly be part of the team designing and implementing care. @clairehsnyman says it best when she describes activated patients. This would mean whole person integrated information, which leads to integrated care #HCLDR |
| Bingle @TheBingle T4 It's one thing when patients can be engaged. It's a whole other ballgame when Google (for example) gets your info. Could be perhaps worse.... #hcldr |
 | Neelam Sharma, RHIT @Nee2Sha RT @PatientCritical: @Brysk_ Immunization records online would save millions in associates work and school costs, before factoring in improvements in care and other savings, error reductions. #hcldr #thinkdigitalhealth |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl RT @NathanGrunewald: T4 No more unanswered questions like: ☑ What was the plan? ☑ What are my meds? ☑ What was my pathology report? ☑ What has my glucose/blood pressure/etc trend been? ☑ list goes on and on... #hcldr |
| Ziva Mann @MannZiva @lewismlevy My ideal? A medical record where a teen could post a picture of themselves making the game winning touchdown. Photos of the quilt you just finished making. Get snapshots, at least, of the whole self in to the EHR. #hcldr |
| Infoway @Infoway There would be fewer adverse events and fewer people falling through the cracks because of an error. #HCLDR #thinkdigitalhealth |
| Lewis Levy, MD, FACP @lewismlevy RT @Infoway: @PatientCritical Four in ten Canadians are interested in having a virtual visit with their doctor. #HCLDR #thinkdigitalhealth |
| Speakbox @hi_speakbox @SandraWoodsMtl yes, yes, yes! Not to mention a person-centered system could easily disseminate leading evidence. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @Infoway: There would be fewer adverse events and fewer people falling through the cracks because of an error. #HCLDR #thinkdigitalhealth |
| Gail Zahtz 🇮🇱 @GailZahtz @MannZiva @lewismlevy And #SDoH ... #hcldr |
| Dr. Gail Beck @GailYentaBeck RT @MaggieKeresteci: T4. Patients and their caregivers would be able to truly be part of the team designing and implementing care. @clairehsnyman says it best when she describes activated patients. This would mean whole person integrated information, which leads to integrated care #HCLDR |
| Colin Hung @Colin_Hung RT @MaggieKeresteci: T4. Patients and their caregivers would be able to truly be part of the team designing and implementing care. @clairehsnyman says it best when she describes activated patients. This would mean whole person integrated information, which leads to integrated care #HCLDR |
| Pat Rich @pat_health T4 Hard though so may find it to believe, I believe organized medicine in Canada is now committed to this new vision @CMA_Docs @Royal_College @FamPhysCan #hcldr |
| HCLDR Moderator @hcldr Repeating T4 If health data is universally accessible by patients, providers, payers with proper security and authorization, how would healthcare be different? #hcldr https://t.co/ZxrDowDIzk |
| Digital Salud @DigitalSalud1 Si los datos de salud fueran universalmente accesibles para pacientes, proveedores, aseguradores, con la seguridad y autorización adecuadas, ¿en qué sería diferente la atención médica? #hcldr By @hcldr |
| Patient Critical Co-op @PatientCritical @Infoway Do you have any stats comparing the numbers of patients who expressed interest vs how many live where virtual visits are not offered or only offered in pilots to less than 5% of a population? How much longer before #thinkdigitalhealth need to become #demanddigitalhealth? #hcldr |
| Colin Hung @Colin_Hung RT @hcldr: Repeating T4 If health data is universally accessible by patients, providers, payers with proper security and authorization, how would healthcare be different? #hcldr https://t.co/ZxrDowDIzk |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver Yes to this! I am 120% on board if tracking referrals leads to better #IntegratedCare #HCLDR |
| Infoway @Infoway People with chronic conditions would be able to better manage their care. #HCLDR #thinkdigitalhealth |
| Isabel Jordan (She/Her) @seastarbatita T4 I've found errors in the records I have access to.. I wonder what errrors there are in the records I don't have access to. Further, I wonder how they're accessing care. 🤔 #hcldr |
| Colin Hung @Colin_Hung RT @seastarbatita: T4 I've found errors in the records I have access to.. I wonder what errrors there are in the records I don't have access to. Further, I wonder how they're accessing care. 🤔 #hcldr |
| Digital Salud @DigitalSalud1 RT @Infoway: There would be fewer adverse events and fewer people falling through the cracks because of an error. #HCLDR #thinkdigitalhealth |
| Joe Babaian 🇺🇦 @JoeBabaian RT @Infoway: People with chronic conditions would be able to better manage their care. #HCLDR #thinkdigitalhealth |
| Gail Zahtz 🇮🇱 @GailZahtz @PatientCritical @Infoway I'm sorry, I was late- are we talking access to information or the ability to have virtual visits? tysm #hcldr |
| Ziva Mann @MannZiva @lewismlevy Teens and 20 somethings I’ve worked with tell me they’d love to be able to take a photo of a rash, a cut lip, etc and ask for guidance. At those ages, whatever gets them engaged, we should do. #hcldr |
| Pat Rich @pat_health @GailZahtz @PatientCritical @Infoway Access to own medical records #hcldr is the main theme |
| Colin Hung @Colin_Hung RT @lewismlevy: A4: A4: WHEN data is universally accessible by the entire care team, healthcare will truly be the team sport that it should be...with everyone seamlessly working together to achieve better outcomes for patents & healthier populations. #Access2020 #pophealth #thinkdigital #hcldr |
| Speakbox @hi_speakbox @RandiDublin @Brysk_ @PatientCritical "patients are the leaders of their healthcare teams" that's the truth we need to build from. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @GraceCordovano: Here’s what access to my children’s records looks like in 2019 👇👇 Pediatrician closed his practice & this is what I got to coordinate my children’s care. I need to drive this 40 min to our new pediatricians practice so they can scan into their system. #hcldr #PtExo https://t.co/GCzH8SJHW7 |
| Mario Lopez @hemo_philiaMan @hcldr T4 it would provide Continuity of care which is currently lacking. #hcldr |
| Colin Hung @Colin_Hung RT @GailYentaBeck: #hcldr T4 The more information we have as care providers and patients, the better the decision and the better the outcome. https://t.co/sjSW2oWx9h |
| Patient Critical Co-op @PatientCritical Yes. Absolutely. #interoperability #transparency #accountability #policy #thinkdigitalhealth has lots of champions but we need logislation...we aren't making more than token progress across Canada #hcldr |
| Infoway @Infoway Health care providers would be able to make informed decisions — in conjunction with patients. #HCLDR #thinkdigitalhealth |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @Nee2Sha @Brysk_ https://t.co/2LVTWeKUZq has the links. I'll try to post. #hcldr |
| Lewis Levy, MD, FACP @lewismlevy A4: Better access to data will help Canada open the virtual front door to care. With one entrance & everything in one place, healthcare is easy to navigate. This is #virtualcare. Well done, @Infoway #Access2020 on working toward a new day for care. #hcldr https://t.co/WjFABAjchy https://t.co/0lyBFBlnYy |
 | Mark Bayley @DocMarkBayley RT @Infoway: 75% of Canadians are interested in receiving electronic reminders for medical appointments. #HCLDR #thinkdigitalhealth |
| Kistein Monkhouse, MPA @KisteinM @RareCandace I’d love to see how we can shift if not restructure #policy in the #US to meet the basic #healthcare needs of #patients providing access not only to #health records but also access to #medicine without #medicaldebt #hcldr |
| Sally James @jamesian @MannZiva @lewismlevy Doc advice via text already available via @98point6Inc (A Seattle company) #hcldr |
| Infoway @Infoway RT @MannZiva: T4: T4: less waste, more time spent either explaining the records to patients in office - or improving the records/way notes are done, to be understood by lay persons. Result? Patients and families with more capacity to understand, engage in and partner for their health #hcldr |
| Mark Bayley @DocMarkBayley RT @Infoway: 75% of Canadians are interested in e-booking medical appointments. #HCLDR #thinkdigitalhealth |
| Enlightening Results 💡 @GraceCordovano @lauradianeappel Not a small thing! Especially if you have a chronic illness, multiple co-morbidities, cancer....you could be repeatedly filling out clipboards at every touch point. Poor workflow. #hcldr |
| Bingle @TheBingle T4 Let's take patient data. Suppose a recorder is involved between patient and Dr.! Ok, someone transfers onto computer but gets it wrong. How bad could it be? #hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver T4 #PatientSafety would be better because test results would not be lost in the mail (true story! circa 2017) and we would have better #IntegratedCare because referrals would not be lost in fax machines. No more misplaced paper prescriptions either! #HCLDR |
| Catherine Parry @caparry Infoway wants to hear from Canadians about their hopes for the future of healthcare. Join the conversation #healthydialogue #hcldr |
| Hayman ⭕️ @realHayman @pat_health T4: agree with Pat. Patients may be getting better sooner! We can keep advancing their care vs constantly revisiting old history. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @caparry: Infoway wants to hear from Canadians about their hopes for the future of healthcare. Join the conversation #healthydialogue #hcldr |
| Infoway @Infoway There would be fewer errors. #HCLDR #thinkdigitalhealth |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD T4: All of this can be solved if EHRs become a D2C product and sold directly to patients. #hcldr |
| Gail Zahtz 🇮🇱 @GailZahtz @pat_health @PatientCritical @Infoway Thanks Pat. And good to see you; it seems like it's been awhile! So why are people talking about virtual visits? I mean I'm all ready to talk about #telehealth but that didn't seem to be the topic. Downside of being late. #hcldr |
| Speakbox @hi_speakbox RT @Infoway: Health care providers would be able to make informed decisions — in conjunction with patients. #HCLDR #thinkdigitalhealth |
| Infoway @Infoway RT @pr_girl40: @hcldr T4 - more information; less intimidation=fewer communication breakdowns & keeps families on same page...Less ‘he said/she said’ interpretation & broken telephone for more seamless & timely care for less waste, more empowerment, #quality & less resentment. Better outcomes #hcldr |
| PR Girl @pr_girl40 @michaelwroberts Taking entire history and wholistic view of patient for better #quality of life until end-of-life #hcldr |
| Rasu Shrestha MD MBA @RasuShrestha T4: When providers come creatively together with payers around patients, real value based care models suddenly become viable. Like what @AtriumHealth just announced with @BlueCrossNC today in #BluePremier! https://t.co/RAnm9CaTpT #hcldr #AtriumHealthProud |
| Isabel Jordan (She/Her) @seastarbatita Holy cow.... yes this.. rn referrals go into some unkown black box. We should know sent/received/waiting/triaged/appt. #hcldr |
| Colin Hung @Colin_Hung RT @RasuShrestha: T4: T4: When providers come creatively together with payers around patients, real value based care models suddenly become viable. Like what @AtriumHealth just announced with @BlueCrossNC today in #BluePremier! https://t.co/RAnm9CaTpT #hcldr #AtriumHealthProud |
| Digital Salud @DigitalSalud1 RT @Infoway: There would be fewer errors. #HCLDR #thinkdigitalhealth |
| Joe Babaian 🇺🇦 @JoeBabaian @pat_health @Colin_Hung @Infoway Humbled. Thanks for being here, Pat! #hcldr |
| Digital Salud @DigitalSalud1 RT @hi_speakbox: @RandiDublin @Brysk_ @PatientCritical "patients are the leaders of their healthcare teams" that's the truth we need to build from. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @jamesian @Brysk_ #Hcldr Yesssss... but with increasingly apparent value of patient data, patients should have right to opt in/out of ALL data sharing by EHR/EMR providers - and to be $ compensated for any sharing of their data - here in Canada, patient = Data owner... |
| Joe Babaian 🇺🇦 @JoeBabaian RT @RasuShrestha: T4: T4: When providers come creatively together with payers around patients, real value based care models suddenly become viable. Like what @AtriumHealth just announced with @BlueCrossNC today in #BluePremier! https://t.co/RAnm9CaTpT #hcldr #AtriumHealthProud |
| Colin Hung @Colin_Hung RT @Infoway: Health care providers would be able to make informed decisions — in conjunction with patients. #HCLDR #thinkdigitalhealth |
| Speakbox @hi_speakbox @MarioATX_MD B2C models aren't the answer, this can be solved and still remain a B2B market. Consumers shouldn't pay. #hcldr |
| Infoway @Infoway RT @GailYentaBeck: #hcldr T4 The more information we have as care providers and patients, the better the decision and the better the outcome. https://t.co/sjSW2oWx9h |
| Dr Rashaad Bhyat @DrRBhyat T4: I’m going to paraphrase @NHSCCIO Dr. Simon Eccles from his talk earlier today: Information asymmetry between the patient and the provider will dissolve. @Infoway @ACCESS2022 #HCLDR #Thinkdigitalhealth |
| HCLDR Moderator @hcldr RT @RasuShrestha: T4: T4: When providers come creatively together with payers around patients, real value based care models suddenly become viable. Like what @AtriumHealth just announced with @BlueCrossNC today in #BluePremier! https://t.co/RAnm9CaTpT #hcldr #AtriumHealthProud |
| HCLDR Moderator @hcldr That’s a wrap. Thank you for joining the #hcldr tweetchat tonight. Your time, tweets and comments are greatly appreciated! |
| Bingle @TheBingle You could. Perhaps many others could see it also. Just saying. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald Great discussion about patient access to health records tonight on #hcldr tweetchat. I learned: 🎯 More (easy) digital and meaningful access important 🎯 Is patient centered design 🎯 Health literacy needs greater focus 🎯 So many people still care #pinksocks 👊🌈🙂🚀 |
| Dr. Gail Beck @GailYentaBeck #hcldr Agree! When I think of a great information retrieval system, I think of banks. Hand a bank card in at any financial institution and, with your permission, they can access your full record. Maybe healthcare institutions should ask the financial sector to help. |
| Infoway @Infoway RT @DrRBhyat: T4: I’m going to paraphrase @NHSCCIO Dr. Simon Eccles from his talk earlier today: T4: I’m going to paraphrase @NHSCCIO Dr. Simon Eccles from his talk earlier today: Information asymmetry between the patient and the provider will dissolve. @Infoway @ACCESS2022 #HCLDR #Thinkdigitalhealth |
| Colin Hung @Colin_Hung RT @NathanGrunewald: Great discussion about patient access to health records tonight on #hcldr tweetchat. I learned: 🎯 More (easy) digital and meaningful access important 🎯 Is patient centered design 🎯 Health literacy needs greater focus 🎯 So many people still care #pinksocks 👊🌈🙂🚀 |
| Dr. Gail Beck @GailYentaBeck RT @NathanGrunewald: Great discussion about patient access to health records tonight on #hcldr tweetchat. I learned: 🎯 More (easy) digital and meaningful access important 🎯 Is patient centered design 🎯 Health literacy needs greater focus 🎯 So many people still care #pinksocks 👊🌈🙂🚀 |
| Digital Salud @DigitalSalud1 RT @Infoway: Health care providers would be able to make informed decisions — in conjunction with patients. #HCLDR #thinkdigitalhealth |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl RT @PatientCritical: Beyond booking, imagine the time and money that codd be saved by patients on travel, work/school absences, parking and also significant anxiety, if a doctor sent a text when they would be running over a half or an hour (or more) late. #hcldr #thinkdigitalhealth |
| Gail Zahtz 🇮🇱 @GailZahtz @pat_health @PatientCritical @Infoway No worries! Can we ask @JoeBabaian @Colin_Hung if we CAN talk about #telehealth sometime? I'd love to with all of the new legislation and codes in the U.S.; and love to hear what you guys are doing north of the border. #hcldr |
| Dr Rashaad Bhyat @DrRBhyat RT @NathanGrunewald: Great discussion about patient access to health records tonight on #hcldr tweetchat. I learned: 🎯 More (easy) digital and meaningful access important 🎯 Is patient centered design 🎯 Health literacy needs greater focus 🎯 So many people still care #pinksocks 👊🌈🙂🚀 |
| Infoway @Infoway RT @seastarbatita: T4 I fundamentally believe in flatenning the power hierarchies b/w pts & providers. Until we (pts & caregivers) are give equal access to data, it simply isn't possible. True shared decision making isn't possible. Equal access is a game changer #hcldr |
| Colin Hung @Colin_Hung @pat_health @JoeBabaian @Infoway Appreciate your comment Pat #hcldr |
| HCLDR Moderator @hcldr A big THANK YOU to our special #hcldr guest hosts tonight @DrRBhyat @Brysk_ @Infoway Thank you for allowing us to be part of #ThinkDigitalHealth and for a great topic/discussion https://t.co/VZGcRVHtdz |
| Nathan Grunewald MD MBA FACS @NathanGrunewald Thanks again @JoeBabaian, @Colin_Hung and @Infoway for a great discussion. #hcldr |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @hi_speakbox There is no incentive to innovate. I disagree that it isn't the answer. The only way for patients to have full control is to direct purchase. Can't expect someone else to pay for something and demand ownership. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @Nee2Sha @Brysk_ You can also go on your state's health website and look under the IIS tag (Immunization Information System) #hcldr |
| Dr. Gail Beck @GailYentaBeck @pat_health @Colin_Hung @JoeBabaian @Infoway Agree! Great chat - have a great week everyone! #hcldr |
| Pat Rich @pat_health And of course I committed the ultimate sin by not including the #hcldr hashtag with this. @drlfarrell would never forgive me. |
| Zayna Khayat, PhD @ZaynaKhayat @pr_girl40 @hcldr Reminds me of this oldie but goodie - what if restaurants were run like healthcare? #hcldr #GimmeMyDamData https://t.co/AtDWC8xo38 |
| Colin Hung @Colin_Hung @NathanGrunewald @JoeBabaian @Infoway Thank you Nathan for Nathan for being online tonight #hcldr |
| Colin Hung @Colin_Hung @CatchTheBaby Awwww. Great pic. Have a wonderful week Ruth Ann #hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver T4 Would also like to see enhanced portability of my healthcare when work, studies or leisure take me away from home #HCLDR |
| Infoway @Infoway Thank you everyone for a great chat! #HCLDR #thinkdigitalhealth |
| Isabel Jordan (She/Her) @seastarbatita @pat_health @drlfarrell Time to take a drink Pat! #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @RasuShrestha @AtriumHealth @BlueCrossNC @SecMandyCohen @CoherenceMed @Colin_Hung @DrSimpsonHSR @wakehealth @HealthData4All @HIMSS @HLTHEVENT Hi Rasu! Thanks for joining this special #hcldr being hosted from @Colin_Hung's own snowy backyard! |
| HCLDR Moderator @hcldr Don’t forget to use the #hcldr hashtag during week for interesting healthcare/leadership posts, pics, articles & news |
| Colin Hung @Colin_Hung @GailYentaBeck @pat_health @JoeBabaian @Infoway Stay warm tonight Gail. It's COLD here in Ottawa #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @Infoway Thank you! :) #hcldr |
| Peggy White, RN, MN, FCAN @_HOBIC Great discussion thanks @Colin_Hung @JoeBabaian and @Infoway |
| Ziva Mann @MannZiva Thanks, all! Another fascinating chat - and as always, so much food for thought and not enough time to chew. #hcldr |
| Pat Rich @pat_health @GailZahtz @PatientCritical @Infoway @JoeBabaian @Colin_Hung Would need 3 hours to talk about #telehealth in Canada. Remember we have multiple provinces and territories with different regulatory frameworks. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @ACCESS2022 @hcldr Thanks for being here! #hcldr |
| Colin Hung @Colin_Hung @ZaynaKhayat @pr_girl40 @hcldr LOL I love that video. Thanks for digging that up #hcldr |
| Bingle @TheBingle RT @GailYentaBeck: #hcldr T4 The more information we have as care providers and patients, the better the decision and the better the outcome. https://t.co/sjSW2oWx9h |
| Colin Hung @Colin_Hung RT @hcldr: Don’t forget to use the #hcldr hashtag during week for interesting healthcare/leadership posts, pics, articles & news |
| Isabel Jordan (She/Her) @seastarbatita @hcldr @DrRBhyat @Brysk_ @Infoway Thank you all for the great chat as well as @Colin_Hung. Was great to be back on #hcldr! |
| Enlightening Results 💡 @GraceCordovano @valentinprgnd @techguy @Colin_Hung @bonniesheeren @Brysk_ Transparency & choice are what's key #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @GailZahtz @pat_health @PatientCritical @Infoway @Colin_Hung Would love to! #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren Goodnight #hcldr Tweetchat friends! See you next week! |
| Colin Hung @Colin_Hung @RareCandace Thank you for being here Candace! #hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver RT @seastarbatita: T4 I fundamentally believe in flatenning the power hierarchies b/w pts & providers. Until we (pts & caregivers) are give equal access to data, it simply isn't possible. True shared decision making isn't possible. Equal access is a game changer #hcldr |
| Patient Critical Co-op @PatientCritical Agree: but also is the problem with Canada still not having a #digitalhealrh strategy. Federal government's first-ever policy of digital strategy notably ignored #thinkdigitalhealth policy. How can #digitalhealth invest when they get no solid footing like #gdpr in EU? #hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver RT @MaggieKeresteci: T4. Patients and their caregivers would be able to truly be part of the team designing and implementing care. @clairehsnyman says it best when she describes activated patients. This would mean whole person integrated information, which leads to integrated care #HCLDR |
| Colin Hung @Colin_Hung @Brysk_ Thank you for being online with us tonight Katie! #hcldr |
| Infoway @Infoway Use #thinkdigitalhealth throughout Digital Health Week to keep the conversation going. #HCLDR |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl Thanks everyone for another fast-tastic #hcldr chat on an important topic for patients! Special hugs to @Colin_Hung & @JoeBabaian for everything they do to keep this going 🤗 https://t.co/R0MZ1B38G6 |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver RT @DrRBhyat: T4: I’m going to paraphrase @NHSCCIO Dr. Simon Eccles from his talk earlier today: T4: I’m going to paraphrase @NHSCCIO Dr. Simon Eccles from his talk earlier today: Information asymmetry between the patient and the provider will dissolve. @Infoway @ACCESS2022 #HCLDR #Thinkdigitalhealth |
| Dr Rashaad Bhyat @DrRBhyat @hcldr @Brysk_ @Infoway Thanks for the invite, it was an honour to participate in this #hcldr tweetchat! Have a great evening everyone! #thinkdigitalhealth |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @valentinprgnd Ownership is one thing. But managing and tracking is a totally different thing. To make a larger impact for society and for communities. Clinicians must have access to this data so that they can better prevent diseases, etc. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @Brysk_ You were awesome! #hcldr |
| Speakbox @hi_speakbox @Ctzen_Improver Should be the standard. People move for many reasons in our modern world. Health data traveling with you should be as important as a current passport. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @SueWoods Hello fellow #hcldr northerner! |
| Gail Zahtz 🇮🇱 @GailZahtz @pat_health @PatientCritical @Infoway @JoeBabaian @Colin_Hung Oh! Can we do it? I'd love love to hear! We're having a small bit of that here with cross-state issues, though news legislation is allowing for #telehealth care to be delivered and reimbursed in a different state than the original hcp. #hcldr |
| Colin Hung @Colin_Hung @MannZiva @hcldr @JoeBabaian Have a wonderful night Ziva! #hcldr |
 | CaptivaLab @CaptivaLab RT @RasuShrestha: With over 14 mil annual patient interactions, here's how @AtriumHealth is coming together with partners for 1⃣healthier outcomes 2⃣better #patientexperience 3⃣lower costs #AtriumHealthProud to partner with @BlueCrossNC for Value-Based Care https://t.co/nLIRXEp6aZ #hcldr https://t.co/98bK1KBQH1 |
| Infoway @Infoway Also, we’re having a national conversation with Canadians about what they want from their health system. Add your voice to the conversation. https://t.co/ZnYLApWzn3 #healthydialogue #HCLDR #thinkdigitalhealth |
| Hayman ⭕️ @realHayman @hcldr Thanks as always to @Colin_Hung and @JoeBabaian, and @infoway for keeping some of the team warm and sheltered in snowy O-town. #HCLDR is still as fast as ever but still full of great shares . Have a great night all. |
| Enlightening Results 💡 @GraceCordovano RT @GraceCordovano: What types of crazy, mind-blowing, annoying, frustrating, dangerous mistakes have you found upon reviewing your/your loved one's medical records? #bcsm #lcsm #btsm #gyncsm #patientchat #AskPatients @s4PM #hcldr #pinksocks #medtwitter #hitsm #hitmc #UnblockHealth #TuesdayThoughts https://t.co/9S9WYWNgIV |
| ACCESS 2022 @ACCESS2022 RT @Infoway: Use #thinkdigitalhealth throughout Digital Health Week to keep the conversation going. #HCLDR |
| Colin Hung @Colin_Hung @SandraWoodsMtl @JoeBabaian Appreciate that you are here online with us Sandra! #hcldr |
| Lewis Levy, MD, FACP @lewismlevy Thanks #hcldr and @Infoway for an inspired discussion tonight. Let's get to work. 👊 #thinkdigitalhealth |
| Nick Adkins @nickisnpdx hat tip @Apple https://t.co/LCclo0VRdL #hcldr 🍏🏆🏁 |
| HCLDR Moderator @hcldr RT @RasuShrestha: With over 14 mil annual patient interactions, here's how @AtriumHealth is coming together with partners for 1⃣healthier outcomes 2⃣better #patientexperience 3⃣lower costs #AtriumHealthProud to partner with @BlueCrossNC for Value-Based Care https://t.co/nLIRXEp6aZ #hcldr https://t.co/98bK1KBQH1 |
| Ziva Mann @MannZiva @Brysk_ Thanks for being with us! Great chat tonight. #hcldr |
| Sue Woods MD MPH 💙 @SueWoods T4: having data accessible means smarter patients and clinicians who can partner effectively #hcldr @S4PM 🤩😋🤓 |
| Infoway @Infoway RT @SueWoods: T4: T4: having data accessible means smarter patients and clinicians who can partner effectively #hcldr @S4PM 🤩😋🤓 |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver @Colin_Hung @JoeBabaian @ACCESS2022 thanks for an amazing #HCLDR chat! The hour just flew by and I learned so much! |
| Gail Zahtz 🇮🇱 @GailZahtz Now you're on the record as having said so Joe :-) Let me know, I'm bursting with all of the new reimbursement information and legislation and looking to share it somewhere and hear everyone's thoughts ;-)))) #hcldr |
| Speakbox @hi_speakbox Thank you! Shout out to the folks who shared their personal experiences. Your feedback makes us all better. This is a collaborative effort. #hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver RT @hi_speakbox: @Ctzen_Improver Should be the standard. People move for many reasons in our modern world. Health data traveling with you should be as important as a current passport. #hcldr |
| Zayna Khayat, PhD @ZaynaKhayat @Colin_Hung @pr_girl40 @hcldr And this one! A patient walks into a restaurant ... #hcldr https://t.co/WP9XUoyznR |
 | Carolyn @1carolynt RT @hcldr: A big THANK YOU to our special #hcldr guest hosts tonight @DrRBhyat @Brysk_ @Infoway Thank you for allowing us to be part of #ThinkDigitalHealth and for a great topic/discussion https://t.co/VZGcRVHtdz |
| Ziva Mann @MannZiva @DrRBhyat @hcldr @Brysk_ @Infoway Thanks for being here!! #hcldr |
| Dr. Randi Dublin @RandiDublin Great connecting with everyone! #hcldr |
| Dr Rashaad Bhyat @DrRBhyat RT @MannZiva: @DrRBhyat @hcldr @Brysk_ @Infoway Thanks for being here!! #hcldr |
| Colin Hung @Colin_Hung @Ctzen_Improver @JoeBabaian @ACCESS2022 Thanks for being here Amy. Safe travels to Ottawa later this week! #hcldr |
| Zayna Khayat, PhD @ZaynaKhayat RT @Infoway: Also, we’re having a national conversation with Canadians about what they want from their health system. Add your voice to the conversation. https://t.co/ZnYLApWzn3 #healthydialogue #HCLDR #thinkdigitalhealth |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @hi_speakbox Who sees this increase in value add? Patients, HCOs, clinicians, payors, or other third parties? Giving access and claiming ownership are very different things. Do we want ownership or access? Which is determined by who pays unfortunately. #hcldr |
| Enlightening Results 💡 @GraceCordovano Thanks for a great chat #hcldr! This one could've gone on for hours. Until next time! |
| Colin Hung @Colin_Hung @realHayman @hcldr @JoeBabaian @Infoway Really appreciate you being here with us tonight Hayman #hcldr |
| Colin Hung @Colin_Hung @k_schuler @JoeBabaian Waving goodnight Katy!!! #hcldr |
| Ziva Mann @MannZiva @lewismlevy Exactly. I like a little more trust and relationship building first, but hey - that might just be my generation showing. #hcldr |
| Colin Hung @Colin_Hung @seastarbatita @hcldr @DrRBhyat @Brysk_ @Infoway On your left ! #hcldr |
| Enlightening Results 💡 @GraceCordovano @MarioATX_MD @hi_speakbox Cash paying patients still do not have ownership of their records. #hcldr |
 | Nokia Healthcare @nokiahealthcare RT @hcldr: T1 Do you have access to your health record — how has having access or not having access impacted your ability to manage your own care? #hcldr https://t.co/EKQO7IEzJh |
 | Genevieve Hammond (she/her) @Gingi1604 In 2019???? |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver This would have implications for preventing overuse too. #HCLDR |
| Bingle @TheBingle Time ME '99 & those contacted thought nothing of screwing the patient. In reality, the healthcare professional(s) could have saved many lives. More important was their reward. Fascinating is respect @Tulane prof. Isaacson has for student writings.#hcldr |
| Amy Ma - 馬錦華 - Settler on Indigenous land @Ctzen_Improver RT @NathanGrunewald: Great discussion about patient access to health records tonight on #hcldr tweetchat. I learned: 🎯 More (easy) digital and meaningful access important 🎯 Is patient centered design 🎯 Health literacy needs greater focus 🎯 So many people still care #pinksocks 👊🌈🙂🚀 |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @GraceCordovano @hi_speakbox It's not the manner in which a patient pays for their medical services. It's a product that was once being sold to HCOs or individual providers that is now built and marketed to sell directly to patients. #hcldr |
| Nokia Healthcare @nokiahealthcare RT @NathanGrunewald: T1 Some on my health record I would consider electronically accessible. Most of it not, including all my childhood records which were destroyed years ago. As such, I would state my care may impacted due to lack of historical knowledge. #hcldr |
| Nokia Healthcare @nokiahealthcare RT @hcldr: T2 One of the concerns often raised about online access to health records is that it will negatively impact people who may not be tech savvy or who are financially disadvantaged. What do you think about these concerns? #hcldr https://t.co/34xKWOWeWY |
| Zayna Khayat, PhD @ZaynaKhayat @SeanJMolloy The Dutch 🇳🇱 set a #BHAG of giving 80% of population who has a chronic illness full digital access to their complete medical record #hcldr https://t.co/bxWaipshT8 https://t.co/sUoTIt4VbW |
| Bingle @TheBingle T5 Thanks JB, Colin & Canada & all for great chat. #hcldr |
| Nokia Healthcare @nokiahealthcare RT @Colin_Hung: @ShereesePubHlth @askdrfitz T2 I agree. That shouldn't be a reason to hold back adoption of new tech. Imagine if Ford waited until all the horses were off the road before introducing cars? We need to figure out ways to bring everyone along #hcldr |
| Nokia Healthcare @nokiahealthcare RT @hcldr: T3 Besides access to their records, what other digitally-enabled health service should be a priority for patients? #hcldr https://t.co/Bx2XZgYGtf |
| Mario Amaro 🐶 (The Private Practice Doc) @MarioATX_MD @hi_speakbox From a systems and data collection perspective patients generally see a healthcare provider a few times a year. A healthcare provider sees multiple patients daily. Patient-centered medical record but not patient-centered data. You'll require more volume to predict. #hcldr |
#HCLDR content from Twitter.