#HITsm Transcript
Healthcare social media transcript of the #HITsm hashtag.
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See #HITsm Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Healthcare Scene @HealthcareScene We’d also like to welcome Praduman Jain, CEO of @vibrent and @EvanMuse from @scrippsresearch #HITsm |
| Healthcare Scene @HealthcareScene Let's take 5 min to introduce ourselves. Who are you? What do you do? Where are you from? Have you ever been part of a research program before? #HITsm |
| Healthcare Scene @HealthcareScene As special guests for this chat, we’d like to welcome Dr. Kelly Gebo, All of Us Chief Medical + Scientific Officer (joining from @kgebo) + Chris Lunt, All of Us Chief Technology Officer (joining from @AllofUsResearch) #HITsm |
| Healthcare Scene @HealthcareScene Hello! Thanks for joining today’s #HITsm chat. Our hosts for today are the @AllofUsResearch Program, a research effort from the National Institutes of Health which aims to enroll 1M+ people to help speed up health research. Details: https://t.co/kbZYz2Flkh #NIH https://t.co/SpfgUmwAu3 |
 | AllofUsUCSD @AllofUsUCSD We’re sitting with our Principal Investigator, Dr. Lucila Ohno-Machado, at @AllofUsUCSD. We’re looking forward to sharing information about the @AllofUsResearch Program and answering your questions @HealthcareScene! #HITsm #JoinAllofUs |
 | AllofUsResearch @AllofUsResearch RT @HealthcareScene: Hello! Thanks for joining today’s #HITsm chat. Our hosts for today are the @AllofUsResearch Program, a research effort from the National Institutes of Health which aims to enroll 1M+ people to help speed up health research. Details: https://t.co/kbZYz2Flkh #NIH https://t.co/SpfgUmwAu3 |
 | CMSGov @CMSGov RT @HHSGov: TODAY at 12PM ET: TODAY at 12PM ET: Join us, @AllofUsResearch + @HealthcareScene for a Twitter chat on digital health technology + the future of #precisionmedicine. Use #HITsm to join the conversation. https://t.co/oIFMqe6gCm #JoinAllofUs https://t.co/6mDEPNZI9H |
 | Margaret Anderson @margaretaindc RT @NIMHDirector: Technology has opened a new frontier in mental health support and data collection, but what is the role of technology in the future of precision medicine? #JoinAllofUs today, at 12 PM ET for an #HITsm chat hosted by @AllofUsResearch + @HealthcareScene! https://t.co/vvYj96F9Bt |
 | Kelly Gebo @kgebo I’m looking forward to sharing information about the @AllofUsResearch Program and answering your questions! #HITsm #JoinAllofUs |
 | Jacobus Vanderwilt @kooswilt RT @EMRAnswers: |
 | Vibrent Health @VibrentHealth Also, Mark Begale, director of strategic partnerships, is joining us. Begale identifies and nurtures new opportunities and collaborations with companies and organizations to form relationships between these entities and Vibrent Health. #HITsm |
| Vibrent Health @VibrentHealth Vibrent Health is glad to be here. On our panel today is Vibrent CEO Praduman “PJ” Jain. He is also principle investigator, Participant Technology Systems Center, All of Us Research Program/Precision Medicine Initiative, National Institutes of Health. #HITsm |
| Vibrent Health @VibrentHealth In addition, we have Dr. Jim Wade, chief medical informatics officer, a clinical and academic leader who is board certified in medical oncology, hematology, infectious diseases, and internal medicine. #HITsm |
 | Mohamad Arif Ali @mhealth1 RT @HHSGov: TODAY at 12PM ET: TODAY at 12PM ET: Join us, @AllofUsResearch + @HealthcareScene for a Twitter chat on digital health technology + the future of #precisionmedicine. Use #HITsm to join the conversation. https://t.co/oIFMqe6gCm #JoinAllofUs https://t.co/6mDEPNZI9H |
 | Epp Experts @EppExperts CMSGov: RT HHSGov: TODAY at 12PM ET: Join us, AllofUsResearch + HealthcareScene for a Twitter chat on digital health technology + the future of #precisionmedicine. Use #HITsm to join the conversation. https://t.co/pzYSpHTglC #JoinAllofUs https://t.co/kB38rmA8DN |
 | National Hispanic Council on Aging @NHCOA Hello @AllofUsResearch, @HealthcareScene we are joining the conversation today! #HITsm #JoinAllofUs Thanks for this initiative! |
| AllofUsResearch @AllofUsResearch @ImmersiveLLC We're excited to have you join us! #HITsm |
 | John Lynn @techguy RT @HealthcareScene: Hello! Thanks for joining today’s #HITsm chat. Our hosts for today are the @AllofUsResearch Program, a research effort from the National Institutes of Health which aims to enroll 1M+ people to help speed up health research. Details: https://t.co/kbZYz2Flkh #NIH https://t.co/SpfgUmwAu3 |
| John Lynn @techguy Hey everyone! Are you ready for a really interesting chat? I've never been part of a research program. At least not one that I chose to take part in. #HITsm |
| Healthcare Scene @HealthcareScene T1: Tell us your view on the role of technology + the future of precision medicine @AllofUsResearch #HITsm #JoinAllofUs https://t.co/oiDXThYWK0 |
 | Brian Mack @BFMack Happy Friday #HITsm Peeps. I'm Brian, I manage #Marcom & #SoMe for @GLHC_HIE in FRIGID Grand Rapids MI! Never as a subject, but I assisted in a couple of research projects in my previous #MobileHealth experience. Looking forward to learning! https://t.co/ypuazvSLM0 |
 | All of Us UMiami @AllofUsUM RT @HealthcareScene: T1: T1: Tell us your view on the role of technology + the future of precision medicine @AllofUsResearch #HITsm #JoinAllofUs https://t.co/oiDXThYWK0 |
| John Lynn @techguy @kgebo @AllofUsResearch Thanks for joining Kelly. I look forward to reading your insights. #HITsm #JoinAllofUs |
 | Stephanie Crabb @stephaniecrabb Former social worker/health Policy implementer turned Healthcare data geek. Interests = #digitalhealth #dataethics #analytics #SDoH #cures #HITsm #JoinAllofUs |
 | HCMStrategists @HCMStrat RT @HealthcareScene: Hello! Thanks for joining today’s #HITsm chat. Our hosts for today are the @AllofUsResearch Program, a research effort from the National Institutes of Health which aims to enroll 1M+ people to help speed up health research. Details: https://t.co/kbZYz2Flkh #NIH https://t.co/SpfgUmwAu3 |
| AllofUsResearch @AllofUsResearch A1: All of Us aims to advance #PrecisionMedicine. Precision medicine is health care that is based on you as an individual. #HITsm #JoinAllofUs |
| Vibrent Health @VibrentHealth A1 Technology is rapidly becoming an equalizer across diverse populations. Highly capable mobile computing devices, wearables and #EHRs are increasingly used in digital health research to advance #precisionmedicine #VibrentHealth #HITsm |
| Vibrent Health @VibrentHealth A1 Nearly every aspect of #precisionmedicine depends on the use of technology. New and innovative technologies, such as precision recruitment and participant-centric data collection and engagement tools and analytics, empower the @AllofUsResearch Program #VibrentHealth #HITsm |
| John Lynn @techguy Great to have you here Praduman! #HITsm #JoinAllofUs |
| HCMStrategists @HCMStrat RT @AllofUsResearch: A1: A1: All of Us aims to advance #PrecisionMedicine. Precision medicine is health care that is based on you as an individual. #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch A1: #PrecisionMedicine may help give health care providers the information they need to make tailored recommendations, relevant to people of different backgrounds, ages, or regions. https://t.co/tos0trhfno #HITsm #JoinAllofUs |
 | Camille @MamaBearCamille @HealthcareScene How exciting that Fitbit data will now be a part of #allofusresearch! Can you talk about how that data will be used? #HITsm |
| Kelly Gebo @kgebo A1: We are all unique + we need prevention strategies + treatments designed for us as individuals. Research breakthroughs won’t happen overnight. But in time they can help usher in an era in which health care is tailored to each of us. #HITsm #JoinAllOfUs |
| AllofUsResearch @AllofUsResearch A1: Through technology—for example through the All of Us online participant experience or the online Research Hub—All of Us provides researchers + participants the chance to gain insight into health prevention + disease treatment. #HITsm #JoinAllofUs |
| John Lynn @techguy Thanks for joining Eric. Looking forward to learning about @allofusresearch today. #HITsm #JoinAllofUs |
 | Andrew LeBlanc @andrewrleblanc RT @HealthcareScene: 30 min til today's #HITsm chat hosted by @AllofUsResearch on the topic of "Using Digital Health Technology to Improve Care for All of Us" Details: https://t.co/kbZYz2Flkh |
| National Hispanic Council on Aging @NHCOA A1: Precision medicine, sometimes called personalized medicine, is an approach to protecting health and treating disease that takes into account a person’s genes, behaviors, and environment. #HITsm #JoinAllofUs https://t.co/kuV5PsTIkU |
| Mohamad Arif Ali @mhealth1 RT @HealthcareScene: Hello! Thanks for joining today’s #HITsm chat. Our hosts for today are the @AllofUsResearch Program, a research effort from the National Institutes of Health which aims to enroll 1M+ people to help speed up health research. Details: https://t.co/kbZYz2Flkh #NIH https://t.co/SpfgUmwAu3 |
| Vibrent Health @VibrentHealth @techguy It's great to join. Thank you for hosting this. #HITsm |
| AllofUsResearch @AllofUsResearch A1: Digital health technology is an important part of our program’s vision for advancing #precisionmedicine by collecting health data that includes info from wearables and apps, as well as from surveys, blood and urine samples, + electronic health records. #HITsm |
 | HHS OASH Region II @HHS_HealthReg2 Health research has high value to society. With the help of technology, health research can provide important info about disease trends & risk factors, outcomes of treatment or public health interventions, functional abilities, patterns of care, & health care costs & use. #HITsm |
 | All of Us-UW @AllofUsBadgers The #HITsm Twitter Chat is underway! Join the conversation about digital #health #tech and the future of health research ... https://t.co/uHtavpyojZ |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hi guys. Happy Friday. #hitsm https://t.co/mTW2cc8RMW |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @VibrentHealth: A1 Nearly every aspect of #precisionmedicine depends on the use of technology. New and innovative technologies, such as precision recruitment and participant-centric data collection and engagement tools and analytics, empower the @AllofUsResearch Program #VibrentHealth #HITsm |
| Mohamad Arif Ali @mhealth1 RT @EMRAnswers: |
 | Health Disparities @NIMHD A1: #HealthIT has tremendous potential for increasing #HealthEquity for racial and ethnic populations. That’s why we’re funding Health IT research that addresses minority health and health disparities. Apply today! https://t.co/iNkoEwPcUy #HITsm https://t.co/X7sPqrRV7O |
| Kelly Gebo @kgebo A1. Digital health technology data is one of many data types @AllofUsResearch is gathering. It can help give researchers a more complete picture of participants’ health. And the more data we gather, the more helpful the program will be. #HITsm #JoinAllofUs |
| AllofUsUCSD @AllofUsUCSD T1: Technology is an important component of the program, but the main emphasis is on how to get participants from various groups that have not been typically represented in research before. Technology will help as part of the overall strategy – Dr. Ohno-Machado. #HITsm |
| John Lynn @techguy Simply stated, I don't think we could even have a conversation about precision medicine without the advances of technology. While imperfect, at least now we can have this conversation and make improvements. Without the tech, we wouldn't even discuss it. #HITsm #JoinAllofUs |
| John Lynn @techguy I know how you feel Brian. I think we got to the 50s today. I'm freezing. #HITsm |
| AllofUsResearch @AllofUsResearch A1: This week we launched the @Fitbit Bring-Your-Own-Device project. In addition to providing health info to drive research breakthroughs through surveys + bio samples, participants can choose to share data from their Fitbit accounts: https://t.co/IZO5CKjpAe #HITsm #JoinAllofUs |
| Brian Mack @BFMack T1: Technology is, IMHO, the gateway (the means to the end) for achieving a vision of integrated, intuitive, and ubiquitous Precision Medicine. #HITsm |
 | ResearchAmerica @ResearchAmerica T2: Our January 2018 survey shows that people are willing to share their data for many reasons, but this support may be decreasing over time. How do you feel? @AllofUsResearch #HITsm https://t.co/lqlM9wGl40 |
| Kelly Gebo @kgebo A1: #PrecisionMedicine takes into account factors like genetics, where you live, and your family health history. If someone does get sick, precision medicine may help health care teams find the treatment that may work best. https://t.co/LOFNVSw86f #HITsm #JoinAllofUs |
 | Lydia L. Seiders @lseiders3 RT @AllofUsResearch: A1: A1: Through technology—for example through the All of Us online participant experience or the online Research Hub—All of Us provides researchers + participants the chance to gain insight into health prevention + disease treatment. #HITsm #JoinAllofUs |
 | Evan D. Muse @EvanMuse A1: Connecting health records + genomics is vital for #PrecisionMedicine but just think of all the time you spend outside of t/ doctors office! DigMed +health tech fills this space. #HITsm #JoinAllofUs |
| HHS OASH Region II @HHS_HealthReg2 #PrecisionMedicine is an approach to health care that is tailored to each of us as individuals. Despite amazing medical advances, most medicine today is still designed for the “average” person. But none of us are average & our health care should not be either. #HITsm #JoinAllofUs |
| National Hispanic Council on Aging @NHCOA RT @AllofUsResearch: A1: A1: This week we launched the @Fitbit Bring-Your-Own-Device project. In addition to providing health info to drive research breakthroughs through surveys + bio samples, participants can choose to share data from their Fitbit accounts: https://t.co/IZO5CKjpAe #HITsm #JoinAllofUs |
 | Marshfield Clinic @mfldclinic RT @AllofUsMCHS: TODAY at 11AM Central, join us, @AllofUsResearch, and @HealthcareScene for a Twitter chat on digital health technology + the future of #precisionmedicine. Use #HITsm to join the conversation. https://t.co/z8veLhj8Fo #JoinAllofUs #Miami #UMiami @UMiamiMedicine @UMiamiHealth https://t.co/1dzr0h5Rf7 |
 | Anthony Leon @anthonynotleon @HealthcareScene @AllofUsResearch T1: I'm excited for the future as long as we keep things in the right hands and actually execute it properly. The belief in actually helping patients being stronger than the need for highest profit ever will go a long way here. #hitsm |
| Brian Mack @BFMack @techguy My heart BLEEDS John! LOL! #HITSM https://t.co/lj5vz0WA5f |
| John Lynn @techguy Amazing story. Can we read all the details of this somewhere? #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch RT @kgebo: A1: A1: We are all unique + we need prevention strategies + treatments designed for us as individuals. Research breakthroughs won’t happen overnight. But in time they can help usher in an era in which health care is tailored to each of us. #HITsm #JoinAllOfUs |
| John Lynn @techguy @ShereesePubHlth Hey Shereese! Glad you could join. #HITsm #JoinAllofUs |
 | EMR, EHR and HIT @ehrandhit RT @kgebo: A1: A1: #PrecisionMedicine takes into account factors like genetics, where you live, and your family health history. If someone does get sick, precision medicine may help health care teams find the treatment that may work best. https://t.co/LOFNVSw86f #HITsm #JoinAllofUs |
| EMR, EHR and HIT @ehrandhit RT @ResearchAmerica: T2: T2: Our January 2018 survey shows that people are willing to share their data for many reasons, but this support may be decreasing over time. How do you feel? @AllofUsResearch #HITsm https://t.co/lqlM9wGl40 |
 | Alec Calac @ajcalac Important to remember that some of these groups have very valid reasons for not participating in biomedical research. #HITsm |
 | Healthcare IT Today @hcittoday Now we just need the healthcare organizations to realize that patients want it shared when it's with the appropriate people. #HITsm https://t.co/cVSQGxRv5a |
| Margaret Anderson @margaretaindc In response to that: partnering w #patients & consumers will make the difference IMO #JoinAllofUs #HITsm |
| EMR, EHR and HIT @ehrandhit RT @techguy: Simply stated, I don't think we could even have a conversation about precision medicine without the advances of technology. While imperfect, at least now we can have this conversation and make improvements. Without the tech, we wouldn't even discuss it. #HITsm #JoinAllofUs |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 The role is central. Simply put, technology is the future of #PrecisionMedicine Technology considers how we live now & in the future, lending itself to individual needs. It's a natural fit for precision med. #hitsm https://t.co/fayBv5Zhiq |
 | AllofUS MSM @AllofUsMSM @HealthcareScene @AllofUsResearch Looking forward to the conversation! #HITsm @AllofUsSEEC @MSMEDUresearch |
| EMR, EHR and HIT @ehrandhit Love this effort! #HITsm https://t.co/RLtgFtQO7i |
 | EXPO.health @EXPOdotHealth RT @NIMHD: A1: A1: #HealthIT has tremendous potential for increasing #HealthEquity for racial and ethnic populations. That’s why we’re funding Health IT research that addresses minority health and health disparities. Apply today! https://t.co/iNkoEwPcUy #HITsm https://t.co/X7sPqrRV7O |
 | NIDDK @NIDDKgov RT @HealthcareScene: Hello! Thanks for joining today’s #HITsm chat. Our hosts for today are the @AllofUsResearch Program, a research effort from the National Institutes of Health which aims to enroll 1M+ people to help speed up health research. Details: https://t.co/kbZYz2Flkh #NIH https://t.co/SpfgUmwAu3 |
| John Lynn @techguy @BFMack I'm sure you'll remember this tweet in summer. #HITsm |
| AllofUsResearch @AllofUsResearch @MargaretAinDC @fitbit 2: We're enthusiastic about offering new ways w/participants to engage with the program over time, through digital health technologies like Fitbit & other devices and apps in the future. #HITsm |
| Stephanie Crabb @stephaniecrabb Yes! These are fundamental to #personalizedmedicine / #precisionmedicine #HITsm |
 | India Hook-Barnard, PhD @SelectAgent RT @AllofUsResearch: A1: A1: This week we launched the @Fitbit Bring-Your-Own-Device project. In addition to providing health info to drive research breakthroughs through surveys + bio samples, participants can choose to share data from their Fitbit accounts: https://t.co/IZO5CKjpAe #HITsm #JoinAllofUs |
 | Clear Genetics @cleargenetics We need innovative tools to bridge the access gap- what is theoretically available cannot #scale practically without #technology #automation #AI #HITsm #GCchat |
| NIDDK @NIDDKgov #HealthProfessionals: Explore the potential of digital health technology. Visit our blog to learn about benefits, challenges, and limitations of using digital tools and technologies in diabetes care. #HITsm #JoinAllofUs https://t.co/QG74E7CnFk |
| Stephanie Crabb @stephaniecrabb It is absolutely about unprecedented reach and engagement. #HITsm |
| Healthcare Scene @HealthcareScene T2: How do you feel about sharing your health info with the @AllofUsResearch Program? What types of health information would you be willing to share? And not share? #HITsm #JoinAllofUs https://t.co/cp8NWHXn8f |
| Brian Mack @BFMack T1: The emphasis needs to be put squarely on technology as a TOOL and not the answer in and of itself. ANY healthcare oriented issue whether treatment, payment, policy or reasearch is deeply personal and requires a personal human connection for success. #HITsm |
| AllofUsResearch @AllofUsResearch RT @kgebo: A1. Digital health technology data is one of many data types @AllofUsResearch is gathering. It can help give researchers a more complete picture of participants’ health. And the more data we gather, the more helpful the program will be. #HITsm #JoinAllofUs |
| John Lynn @techguy Agreed. The challenge of collecting that data is clear though. First, how do you get accurate, useful data. Second, how do you sift through that mass of data to get the relevant pieces that actually indicate your health needs. #HITsm #JoinAllofUs |
| Vibrent Health @VibrentHealth A2 Here @VibrentHealth, many staff members are part of the @AllofUsResearch Program, and they are eager to share their data to help other people and advance #precisionmedicine #VibrentHealth #HITsm |
| AllofUsResearch @AllofUsResearch A2: Participants will be asked to share information such as where they live, what they do + more about their family health history. https://t.co/OTYB8qFliR #HITsm #JoinAllofUs |
| Kelly Gebo @kgebo @CamilleReyATX @HealthcareScene Thanks for your Q! We look forward to using this data in research studies, including how activity patterns and how activity level impacts health and how they relate to genetics, nutrition, and sleep. #HITsm #JoinAllofUs |
| John Lynn @techguy So do you have faith in that future? Or are you scared that it will go another direction? #HITsm #JoinAllofUs |
| John Lynn @techguy @ajcalac What are some of those reasons? #HITsm #JoinAllofUs |
| John Lynn @techguy RT @HospitalEHR: Now we just need the healthcare organizations to realize that patients want it shared when it's with the appropriate people. #HITsm https://t.co/cVSQGxRv5a |
| HHS OASH Region II @HHS_HealthReg2 The @AllofUsResearch Program is powered by its participants. The health information and biosamples they contribute may provide insights into the differences in our physiology, risk of disease, and response to treatments. #HITsm #JoinAllofUs https://t.co/c0bPN3ogbA |
| AllofUsResearch @AllofUsResearch A2: We’re asking participants to share their information with researchers. This includes electronic health records + info shared through surveys about their habits + environment. https://t.co/DoNHubZv3D. #HITsm #JoinAllofUs |
| Brian Mack @BFMack @techguy I've got the memory of an elephant! I still pull out your Tom Brady tweet from time to time when I need a self-satisfied chuckle! LOL! #HITSM |
| Andrew LeBlanc @andrewrleblanc RT @EvanMuse: A1: A1: Connecting health records + genomics is vital for #PrecisionMedicine but just think of all the time you spend outside of t/ doctors office! DigMed +health tech fills this space. #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch A2: As All of Us adds more locations nationwide, many people will be invited to a clinic visit for simple physical measurements like height and weight, and to give blood and urine samples. #JoinAllofUs #HITsm |
| HHS OASH Region II @HHS_HealthReg2 All participants will answer questions about their lifestyle, environment, and health history. Some may also be asked to share their electronic health records and give blood and urine samples (also called “biosamples”). #HITsm #JoinAllofUs |
| Kelly Gebo @kgebo A2: Participants are our partners. It’s important that everyone understands each step along the way. Here’s what they can expect if they #JoinAllofUs. https://t.co/gm3gCjajhp #HITsm |
| Stephanie Crabb @stephaniecrabb A2: I would share it all as long as the data use request and intent was clear. This is critical to advance #consumerdataliteracy. #dataliteracy #HITsm #JoinAllofUs |
| John Lynn @techguy @LeaChatham Glad you could join us. Looking forward to your insights. #HITsm |
 | All of Us SEEC @AllofUsSEEC We at @AllofUsSEEC are excited to be part of a conversation surrounding @AllofUsResearch, digital health technology, & #precisionmedicine! Join us by following #HITsm! @UnivMiami @EmoryMedicine @MSMEDUresearch @UFHealth https://t.co/9RpJhQhS3C |
 | in the Golden State @ButtercupD RT @HealthcareScene: T2: T2: How do you feel about sharing your health info with the @AllofUsResearch Program? What types of health information would you be willing to share? And not share? #HITsm #JoinAllofUs https://t.co/cp8NWHXn8f |
| AllofUS MSM @AllofUsMSM @HealthcareScene @AllofUsResearch Technology is a great tool that is becoming more and more accessible. Tech in combination with face to face engagement can be a real powerful to engage and educate on the importance of precision medicine. #HITsm #JoinAllofUs @AllofUsSEEC @MSMEDUresearch |
| John Lynn @techguy I think there are a lot of access gaps. Which one are you referring to? #HITsm #JoinAllofUs |
| National Hispanic Council on Aging @NHCOA A1: Here are some ways that a precision medicine approach can protect your health: Using Family Health History, Screening for Diseases Before You Get Sick, and Tailoring Prevention and Treatments. #HITsm #JoinAllofUs https://t.co/js0RWdp26T |
| HCMStrategists @HCMStrat RT @AllofUsResearch: A2: A2: Participants will be asked to share information such as where they live, what they do + more about their family health history. https://t.co/OTYB8qFliR #HITsm #JoinAllofUs |
| HHS OASH Region II @HHS_HealthReg2 The information and biosamples collected will become part of the largest data resource of its kind. Researchers can use this data to investigate why some people develop certain health conditions, while others do not. #HITsm #JoinAllofUs |
| All of Us SEEC @AllofUsSEEC @HealthcareScene T2: How do you feel about sharing your health info with the @AllofUsResearch Program? What types of health information would you be willing to share? And not share? #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch RT @kgebo: A2: A2: Participants are our partners. It’s important that everyone understands each step along the way. Here’s what they can expect if they #JoinAllofUs. https://t.co/gm3gCjajhp #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba This is a difficult question. I strongly believe in sharing the data, but as a minority, I feel strongly that the researchers who want the data from my segment of the population are not worthy of trust and are not inclusive in their daily practice #hitsm https://t.co/pKfveJdGSh |
| Kelly Gebo @kgebo A2: Activities and data types we collect will grow over time. We’re asking participants to stay with us for decades so researchers can have the information they need to better understand the progression of health over time. #HITsm #JoinAllofUs |
| John Lynn @techguy I'll admit that I'm intrigued, but reticent. I like the idea of contributing to the advancement of precision medicine. I just fear of the unknown when it comes to breaches & whether the data is safe. If I felt it was protected, all data sharing is fine #HITsm #JoinAllofUs |
 | CleanDrop @CleanDropMobile RT @ShereesePubHlth: This is a difficult question. I strongly believe in sharing the data, but as a minority, I feel strongly that the researchers who want the data from my segment of the population are not worthy of trust and are not inclusive in their daily practice #hitsm https://t.co/pKfveJdGSh |
| HHS OASH Region II @HHS_HealthReg2 The @AllofUsResearch Program aims to enable the research breakthroughs that will bring us precision medicine. The #AllofUsResearch Program ultimately wants to pave the way for the discovery of more individualized approaches to health care. #HITsm #JoinAllofUs https://t.co/uA0t6AMwYm |
| ResearchAmerica @ResearchAmerica T4: The majority of Americans from our January 2018 survey reported they were greatly concerned with declining life expectancy, and rank the following as their top concerns. How can @AllofUsResearch help people to live longer, better lives? #HITsm https://t.co/m5xcyCmt5T |
| John Lynn @techguy Good point. Data doesn't tell us anything. It's what you do with the data that produces the desired result...or not. #HITsm #JoinAllofUs |
| Brian Mack @BFMack T2: My professional and personal life is pretty readily available online for anyone interested. That said, PHI is a different deal... I would be VERY willing to contribute, provided that I had a strong comfo0rt level that my privacy and anonymity could be secured. #HITsm |
| John Lynn @techguy @VibrentHealth @AllofUsResearch What do you think there motivation is for wanting to share? #HITsm #JoinAllofUs |
| Alec Calac @ajcalac @techguy (1) The forced sterilization of Native American women by the Indian Health Service, without their knowledge or consent, in the 1960s and 1970s. #HITsm https://t.co/bISFQDW8VO |
 | NIH OAR @NIH_OAR RT @NIMHD: A1: A1: #HealthIT has tremendous potential for increasing #HealthEquity for racial and ethnic populations. That’s why we’re funding Health IT research that addresses minority health and health disparities. Apply today! https://t.co/iNkoEwPcUy #HITsm https://t.co/X7sPqrRV7O |
| Alec Calac @ajcalac @techguy (2) The improper use of genetic samples in Arizona. #HITsm https://t.co/dMIArcbrwV |
| AllofUsResearch @AllofUsResearch RT @NIDDKgov: #HealthProfessionals: #HealthProfessionals: Explore the potential of digital health technology. Visit our blog to learn about benefits, challenges, and limitations of using digital tools and technologies in diabetes care. #HITsm #JoinAllofUs https://t.co/QG74E7CnFk |
| John Lynn @techguy I think this is how most feel. What's interesting is that once you have a chonic condition, you're even more willing to share. In many cases, what do you have to lose? #HITsm #JoinAllofUs https://t.co/203N4KrgJn |
| EMR, EHR and HIT @ehrandhit RT @AllofUsMSM: @HealthcareScene @AllofUsResearch Technology is a great tool that is becoming more and more accessible. Tech in combination with face to face engagement can be a real powerful to engage and educate on the importance of precision medicine. #HITsm #JoinAllofUs @AllofUsSEEC @MSMEDUresearch |
| AllofUsResearch @AllofUsResearch RT @AllofUsMSM: @HealthcareScene @AllofUsResearch Technology is a great tool that is becoming more and more accessible. Tech in combination with face to face engagement can be a real powerful to engage and educate on the importance of precision medicine. #HITsm #JoinAllofUs @AllofUsSEEC @MSMEDUresearch |
 | HOPE NBCUSA @HOPE_NBCUSA A1: As evidenced by the new opportunities for Fitbit users, technology will be a driving force in the future of #PrecisionMedicine @AllofUsResearch #HITsm #JoinAllofUs #HOPENBC |
| John Lynn @techguy Is there anything that could be done to help alleviate that fear? #HITsm #JoinAllofUs https://t.co/R1Y8fmU12a |
| Evan D. Muse @EvanMuse A2: As a clinician and researcher I am looking forward to breaking the mold of traditional studies, participant partnerships and data sharing in @AllofUsResearch is key to innovation #HITsm |
| Healthcare Scene @HealthcareScene @CamilleReyATX Thanks for joining the chat. #HITsm #JoinAllofUs |
| John Lynn @techguy Any suggestions on the how #JoinAllofUs should better partner with patients? Maybe some work with @savvy_coop would make sense? #HITsm |
| Brian Mack @BFMack @ShereesePubHlth Shereese, I affirm your concern. It is well placed and not without OVERWHELMING precedent. #HITSM |
| AllofUsResearch @AllofUsResearch RT @EvanMuse: A2: A2: As a clinician and researcher I am looking forward to breaking the mold of traditional studies, participant partnerships and data sharing in @AllofUsResearch is key to innovation #HITsm |
| Stephanie Crabb @stephaniecrabb But I think people, once over the “fear of knowing”, do want a personalized care experience that demands one’s personal data be exposed in a controlled manner. #HITsm |
| John Lynn @techguy Has @allofusresearch shared the number of participants to date? I don't want to say we're all sheep, but kind of. Having a critical mass of people already involved would probably alleviate fear for many. #HITsm #JoinAllofUs |
| Andrew LeBlanc @andrewrleblanc RT @EvanMuse: A2: A2: As a clinician and researcher I am looking forward to breaking the mold of traditional studies, participant partnerships and data sharing in @AllofUsResearch is key to innovation #HITsm |
| Healthcare Scene @HealthcareScene T3: How should digital health technology be integrated into the @AllofUsResearch Program? #HITsm #JoinAllofUs https://t.co/D0mVmPNHaQ |
| John Lynn @techguy @BFMack lol...what's the fun of smack talk if no one remembers it? #HITsm |
| Anthony Leon @anthonynotleon @HealthcareScene @AllofUsResearch T2: I'm not familiar with the project. Quick glance saw they were up front about privacy policy but did not read it yet. I'm down to participate in most things, just curious how the information will handled incl de-id and if acquired do I lose those protections. #hitsm |
| John Lynn @techguy Interesting point. Knowing the intent and allowed uses for that data is really important. #HITsm #JoinAllofUs |
| AllofUsUCSD @AllofUsUCSD T3: Digital Health Technology must fit the workflows of participants, adapt to their needs and leave no one behind. – Dr. Ohno-Machado #HITsm #JoinAllofUs |
| Vibrent Health @VibrentHealth A2 Many people are willing to share health information like genomics, personal and family medical history, patient reported outcomes, #EHR, data from wearables, body measurements, biosamples, medication data and environmental exposure #VibrentHealth #HITsm |
| John Lynn @techguy RT @NHCOA: A1: Here are some ways that a precision medicine approach can protect your health: A1: Here are some ways that a precision medicine approach can protect your health: Using Family Health History, Screening for Diseases Before You Get Sick, and Tailoring Prevention and Treatments. #HITsm #JoinAllofUs https://t.co/js0RWdp26T |
 | Mark Harmel MPH, CDCES @MarkHarmel I joined @AllofUsResearch this week. Learn more about the large cohort program in a Twitter chat happening now. #HITsm |
| Brian Mack @BFMack @techguy #HITSM https://t.co/KYfYdU2IPA |
| Vibrent Health @VibrentHealth A3 Digital health technology enables new and rich data sets that were not previously available for use in research. Technology should be easy to use for the masses, interactive and provide intelligent and actionable feedback to the user about their health #VibrentHealth #HITsm |
| AllofUsResearch @AllofUsResearch A3: There are thousands of research Qs. The All of Us Research Hub hopes to provide answers. Once it is made available, researchers will be able to use the diverse data here to explore a wide range of biomedical + scientific hypotheses https://t.co/yNkZXZXKl9 #HITsm #JoinAllofUs |
| John Lynn @techguy Is there anyone you would trust with that data? #HITsm #JoinAllofUs |
 | Shivani Nazareth @shivaninaz RT @cleargenetics: We need innovative tools to bridge the access gap- what is theoretically available cannot #scale practically without #technology #automation #AI #HITsm #GCchat |
| EMR, EHR and HIT @ehrandhit RT @anthonynotleon: @HealthcareScene @AllofUsResearch T2: @HealthcareScene @AllofUsResearch T2: I'm not familiar with the project. Quick glance saw they were up front about privacy policy but did not read it yet. I'm down to participate in most things, just curious how the information will handled incl de-id and if acquired do I lose those protections. #hitsm |
 | adampellegrini @adampellegrini RT @AllofUsMSM: @HealthcareScene @AllofUsResearch Technology is a great tool that is becoming more and more accessible. Tech in combination with face to face engagement can be a real powerful to engage and educate on the importance of precision medicine. #HITsm #JoinAllofUs @AllofUsSEEC @MSMEDUresearch |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @BFMack: @ShereesePubHlth Shereese, I affirm your concern. It is well placed and not without OVERWHELMING precedent. #HITSM |
| AllofUsResearch @AllofUsResearch A3: Our research program is powered by our participants. Through our online portal, you can create an account, review the consent, share your electronic health records, answer survey questions, and more. https://t.co/DoNHubZv3D #HITsm #JoinAllofUs |
| adampellegrini @adampellegrini RT @AllofUsResearch: A3: A3: There are thousands of research Qs. The All of Us Research Hub hopes to provide answers. Once it is made available, researchers will be able to use the diverse data here to explore a wide range of biomedical + scientific hypotheses https://t.co/yNkZXZXKl9 #HITsm #JoinAllofUs |
| Kelly Gebo @kgebo @ResearchAmerica @AllofUsResearch We agree these are important topics and researchers will have the opportunity to study many of these and other important factors to improve health outcomes. #HITsm #JoinAllofUs |
| HHS OASH Region II @HHS_HealthReg2 Participants can potentially use cell phones, computers, internet databases, or mobile apps (depending which instrument is available to the participants) to provide the @AllofUsResearch Program in an efficient, timely fashion. #HITsm #JoinAllofUs |
| John Lynn @techguy Thanks for sharing. I wasn't familiar with some of these things. #HITsm #JoinAllofUs |
| Vibrent Health @VibrentHealth A3 Digital health technology should provide #interoperability of data between the @AllofUsResearch Program and other health studies to create an even larger data set that can enable new discoveries and provide data back to the participant and researchers #VibrentHealth #HITsm |
| HOPE NBCUSA @HOPE_NBCUSA A2: Participants will share basic information about themselves when they #JoinAllOfUs at https://t.co/lva8Ca7dYE . After the initial sign up, they may be asked to share blood and urine samples. https://t.co/itF3aeRf6v @AllofUsResearch #HITsm #HOPENBC |
| Anthony Leon @anthonynotleon @techguy I have more faith than I used to. Meeting #pinksocks and other good HIT folks gave me hope vs the apologists/fall in line type I had heard soapboxing for years. Time and time we've been shown money talks and good people walk but there is a paradigm shift happening, #hitsm https://t.co/aCOG7sfD9C |
| AllofUsResearch @AllofUsResearch @ButtercupD @HealthcareScene 1: Privacy & security are top priorities for us. We run ongoing security testing for our platform and have strict policies and processes in place for data access and monitoring. See more about our security safeguards here: https://t.co/31gXT8DFYw #HITsm #JoinAllofUs |
| John Lynn @techguy It's clear to me that patients have no issues sharing data if it benefits them. However, the fear that their data will be used for some alternate benefit is a real fear for many. #HITsm #JoinAllofUs |
| Evan D. Muse @EvanMuse A3: From passive sensing tech and polls/surveys to connecting researchers to participants technology should bring the study TO the participants #HITsm #JoinAllofUs |
 | @jhengstler @jhengstler RT @ShereesePubHlth: This is a difficult question. I strongly believe in sharing the data, but as a minority, I feel strongly that the researchers who want the data from my segment of the population are not worthy of trust and are not inclusive in their daily practice #hitsm https://t.co/pKfveJdGSh |
| AllofUsResearch @AllofUsResearch @ButtercupD @HealthcareScene 2: Also, check out our Data Security Policy Principles & Framework, that's foundational to all of our work: https://t.co/f6NRN64BWn #HITsm #JoinAllofUs |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @aaronjun_ It's one of my initiatives this year. Having an open dialogue is the best path forward. When I sit in conferences & hear orgs talk about how hard it is to get data from certain pops, they ignore the obvious contributing factors. #hitsm |
| AllofUsResearch @AllofUsResearch A3: We’re starting with bring-your-own wearables to learn more about collecting, curating, and scaling this information for research. In fact, we just announced a project with @Fitbit this week: https://t.co/qMlGjpfHBA #JoinAllofUs #HITsm |
| ResearchAmerica @ResearchAmerica T4: The majority of those surveyed in January 2018 reported they didn’t think the public investment in mental health research was enough. How will @AllofUs address this? #HITsm https://t.co/XmeLNyHLCf |
| John Lynn @techguy @MarkHarmel @AllofUsResearch Thanks for sharing and joining the chat. Looking forward to your insights. #HITsm #JoinAllofUs |
| Brian Mack @BFMack T3: ***SHAMELESS SELF-PROMOTION ALERT!*** - I would be interested to know if you have connected with an organization like @SHIEClive, the national association for Health Information Exchange? HIE's are an ABUNDANT resource for aggregated and anonomized health data. #HITsm |
| HCMStrategists @HCMStrat RT @AllofUsResearch: A3: A3: There are thousands of research Qs. The All of Us Research Hub hopes to provide answers. Once it is made available, researchers will be able to use the diverse data here to explore a wide range of biomedical + scientific hypotheses https://t.co/yNkZXZXKl9 #HITsm #JoinAllofUs |
 | David McCallie @dmccallie RT @techguy: It's clear to me that patients have no issues sharing data if it benefits them. However, the fear that their data will be used for some alternate benefit is a real fear for many. #HITsm #JoinAllofUs |
| National Hispanic Council on Aging @NHCOA RT @AllofUsMSM: @HealthcareScene @AllofUsResearch Technology is a great tool that is becoming more and more accessible. Tech in combination with face to face engagement can be a real powerful to engage and educate on the importance of precision medicine. #HITsm #JoinAllofUs @AllofUsSEEC @MSMEDUresearch |
| National Hispanic Council on Aging @NHCOA RT @AllofUsResearch: A3: A3: There are thousands of research Qs. The All of Us Research Hub hopes to provide answers. Once it is made available, researchers will be able to use the diverse data here to explore a wide range of biomedical + scientific hypotheses https://t.co/yNkZXZXKl9 #HITsm #JoinAllofUs |
 | Immersive @ImmersiveLLC A3: #digitalhealth is a huge sandbox, just like @analytics. We need to tolerate experimentation, trial and error. Digital health generates net new data sets that need to get mashed up with other data to understand their value. #hitSM |
| National Hispanic Council on Aging @NHCOA RT @AllofUsResearch: A3: A3: Our research program is powered by our participants. Through our online portal, you can create an account, review the consent, share your electronic health records, answer survey questions, and more. https://t.co/DoNHubZv3D #HITsm #JoinAllofUs |
| Andrew LeBlanc @andrewrleblanc RT @EvanMuse: A3: A3: From passive sensing tech and polls/surveys to connecting researchers to participants technology should bring the study TO the participants #HITsm #JoinAllofUs |
| Kelly Gebo @kgebo I agree that participant involvement and return of results are crucial to the success of the @AllofUsResearch Program. #HITsm #JoinAllofUs |
 | Zamora Consulting Group @ZamoraConsGrp RT @AllofUsResearch: A3: A3: We’re starting with bring-your-own wearables to learn more about collecting, curating, and scaling this information for research. In fact, we just announced a project with @Fitbit this week: https://t.co/qMlGjpfHBA #JoinAllofUs #HITsm |
| Zamora Consulting Group @ZamoraConsGrp RT @AllofUsBadgers: The #HITsm Twitter Chat is underway! Join the conversation about digital #health #tech and the future of health research ... https://t.co/uHtavpyojZ |
| All of Us UMiami @AllofUsUM A3 Digital health technology gives researchers the ability to utilize new data sets that were not previously available for use in #healthresearch. This tech should be easy to use and provide the user info that is actionable & informative #JoinAllofUs #HITsm #Miami |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @techguy I was thinking more about the trust of the certain groups as a whole, not necessarily just me. I do think there may be some orgs who have integrity but not proven. #HITsm |
| John Lynn @techguy T3: Start with easily collecting the data. Visibility to the patient about how their data is being used. Then, easy access for researchers to actually use the data. #HITsm #JoinAllofUs |
| Andrew LeBlanc @andrewrleblanc RT @kgebo: I agree that participant involvement and return of results are crucial to the success of the @AllofUsResearch Program. #HITsm #JoinAllofUs |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @techguy: T3: T3: Start with easily collecting the data. Visibility to the patient about how their data is being used. Then, easy access for researchers to actually use the data. #HITsm #JoinAllofUs |
| Kelly Gebo @kgebo A3: Participants will be able to access their own survey responses, electronic health records, test results, and other data through the Participant Portal. #HITsm #JoinAllofUs |
| John Lynn @techguy I agree. The data collection needs to be nearly invisible to be effective. #HITsm #JoinAllofUs |
| HOPE NBCUSA @HOPE_NBCUSA A3: People may join and monitor their information through their smart devices using a simple app. @AllofUsResearch #HITsm #JoinAllofUs #HOPENBC https://t.co/lva8Ca7dYE |
| EMR, EHR and HIT @ehrandhit RT @AllofUsResearch: @ButtercupD @HealthcareScene 1: @ButtercupD @HealthcareScene 1: Privacy & security are top priorities for us. We run ongoing security testing for our platform and have strict policies and processes in place for data access and monitoring. See more about our security safeguards here: https://t.co/31gXT8DFYw #HITsm #JoinAllofUs |
| EMR, EHR and HIT @ehrandhit RT @AllofUsResearch: @ButtercupD @HealthcareScene 2: @ButtercupD @HealthcareScene 2: Also, check out our Data Security Policy Principles & Framework, that's foundational to all of our work: https://t.co/f6NRN64BWn #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch RT @kgebo: A3: A3: Participants will be able to access their own survey responses, electronic health records, test results, and other data through the Participant Portal. #HITsm #JoinAllofUs |
 | Melissa Cole @ColeFACHE RT @ResearchAmerica: T4: T4: The majority of those surveyed in January 2018 reported they didn’t think the public investment in mental health research was enough. How will @AllofUs address this? #HITsm https://t.co/XmeLNyHLCf |
| EMR, EHR and HIT @ehrandhit RT @techguy: It's clear to me that patients have no issues sharing data if it benefits them. However, the fear that their data will be used for some alternate benefit is a real fear for many. #HITsm #JoinAllofUs |
| EMR, EHR and HIT @ehrandhit RT @ShereesePubHlth: This is a difficult question. I strongly believe in sharing the data, but as a minority, I feel strongly that the researchers who want the data from my segment of the population are not worthy of trust and are not inclusive in their daily practice #hitsm https://t.co/pKfveJdGSh |
| EMR, EHR and HIT @ehrandhit RT @ResearchAmerica: T4: T4: The majority of those surveyed in January 2018 reported they didn’t think the public investment in mental health research was enough. How will @AllofUs address this? #HITsm https://t.co/XmeLNyHLCf |
| All of Us SEEC @AllofUsSEEC @HealthcareScene T3: How should digital health technology be integrated into the @AllofUsResearch Program? #HITsm #JoinAllofUs |
| Margaret Anderson @margaretaindc I also think you’ll be providing data back on #digital tech-accuracy, weighted importance, customer experience #JoinAllofUs #HITsm |
| Healthcare Scene @HealthcareScene T4: What would you like the @AllofUsResearch Program to learn from the data of 1M people? What areas should they focus on? #HITsm #JoinAllofUs https://t.co/Q4UY0jwLQr |
| John Lynn @techguy Interesting question. Would HIEs be willing to share their data with a research effort like this? #HITsm #JoinAllofUs https://t.co/2i8RFiXxyq |
| Anthony Leon @anthonynotleon @HealthcareScene @AllofUsResearch T3: Anyway to remove the friction / load in the process is what needs to happen. You want mass adoption, remove the ability to walk away from it. #hitsm |
| EMR, EHR and HIT @ehrandhit RT @kgebo: I agree that participant involvement and return of results are crucial to the success of the @AllofUsResearch Program. #HITsm #JoinAllofUs |
| Stephanie Crabb @stephaniecrabb A3: We should encourage and fund #digitalhealth. There are hundreds of pharma #clinicaltrials that are embedded with digital at all phases. This is going to accelerate cures. #HITsm |
| AllofUsResearch @AllofUsResearch A4: By combining data from 1M+ people over time, researchers will be able to understand the progression of health + disease. This may lead to better care for all of us. https://t.co/KA86Zb4La6 #JoinAllofUs #HITsm |
| AllofUsUCSD @AllofUsUCSD T4: Promoting health and preventing disease progression is a priority. Integrating various types of data from an unprecedented number of people is exciting for discoveries by biomedical and behavioral researchers as well as data scientists – Dr. Ohno-Machado #HITsm #JoinAllofUs |
| Health Disparities @NIMHD A4: Participants will share information about many aspects of their health and lives. Considering these factors could yield important advances in addressing health disparities. More on why NIMHD supports @AllofUsResearch: https://t.co/vTGMOIqYVC #HITsm https://t.co/aivQShFC9w |
| AllofUsResearch @AllofUsResearch A4: As the amount of data grows with more and more participants sharing health information, patterns that wouldn’t have been visible at a smaller scale may emerge. https://t.co/4l3U9M1oTw #JoinAllofUs #HITsm |
| John Lynn @techguy @wilbanks @AllofUsResearch Thanks for sharing and feel free to share your insights after the chat too. #HITsm #JoinAllofUs |
 | Joseph Steward @jsteward2930 RT @AllofUsResearch: A4: A4: As the amount of data grows with more and more participants sharing health information, patterns that wouldn’t have been visible at a smaller scale may emerge. https://t.co/4l3U9M1oTw #JoinAllofUs #HITsm |
| Brian Mack @BFMack T3: HIE's are uniquiely positioned to import, aggregate, de-identify, parse, and distribute a broad range of health datasets, from a virtually limiless pool of sources. #HITsm |
| Healthcare IT Today @hcittoday Well said! #HITsm #JoinAllofUs https://t.co/dw3dmtWuCt |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Earlier this year, I put out some content, "I would if I could trust you." https://t.co/z7UvREDugY regarding this issue of research, data collection & rebuilding trust. I received so much feedback. #hitsm |
| Kelly Gebo @kgebo A4: Unlike research studies that focus on a specific disease or population, the @AllofUsResearch Program will have the scale + scope to enable thousands of studies about many different health conditions. https://t.co/NdO2xJ9UiV #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch RT @VibrentHealth: A3 Digital health technology should provide #interoperability of data between the @AllofUsResearch Program and other health studies to create an even larger data set that can enable new discoveries and provide data back to the participant and researchers #VibrentHealth #HITsm |
| Evan D. Muse @EvanMuse A4: Opportunities to gain insight on lifestyle and risk factors from participants around the country who have NEVER been involved in a study before #HITsm #JoinAllofUs |
| Anthony Leon @anthonynotleon @techguy Can I add, would they be willing to share this data for FREE? #hitsm |
| AllofUsResearch @AllofUsResearch RT @AllofUsUM: A3 Digital health technology gives researchers the ability to utilize new data sets that were not previously available for use in #healthresearch. This tech should be easy to use and provide the user info that is actionable & informative #JoinAllofUs #HITsm #Miami |
| John Lynn @techguy This is a tough one. I think the things I'd like them to discover most are things that we can't easily think about. I feel like those are the most important discoveries...the ones we can't predict. #HITsm #JoinAllofUs https://t.co/wk70XJJcha |
| Andrew LeBlanc @andrewrleblanc RT @EvanMuse: A4: A4: Opportunities to gain insight on lifestyle and risk factors from participants around the country who have NEVER been involved in a study before #HITsm #JoinAllofUs |
| HHS OASH Region II @HHS_HealthReg2 Certain populations can be more at risk for certain diseases—such as diabetes, HIV, and heart disease—than others. So it is important for patients in those populations who are more likely to be treated for a condition to be included in a trial. #HITsm #JoinAllofUs |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @techguy: This is a tough one. I think the things I'd like them to discover most are things that we can't easily think about. I feel like those are the most important discoveries...the ones we can't predict. #HITsm #JoinAllofUs https://t.co/wk70XJJcha |
 | Kimberly Reich @KBStriedReich RT @kgebo: I agree that participant involvement and return of results are crucial to the success of the @AllofUsResearch Program. #HITsm #JoinAllofUs |
| John Lynn @techguy @ShereesePubHlth Got ya. It's definitely a challenging problem with lots of history. #HITsm |
| Stephanie Crabb @stephaniecrabb Tbe #datamonetization train already left the station. This is why documented and published codes of #dataethics, more clear and crisp than the NOPP, are critical. #HITsm |
| All of Us UMiami @AllofUsUM RT @NIMHD: A4: A4: Participants will share information about many aspects of their health and lives. Considering these factors could yield important advances in addressing health disparities. More on why NIMHD supports @AllofUsResearch: https://t.co/vTGMOIqYVC #HITsm https://t.co/aivQShFC9w |
| Melissa Cole @ColeFACHE How can we become more personalized in our healthcare delivery with @AllofUsUCSD project - reduce cost, and support quality cc: @EricTopol #HITsm |
| John Lynn @techguy Please share the story for the rest of us. #HITsm #JoinAllofUs |
| Zamora Consulting Group @ZamoraConsGrp RT @AllofUsResearch: A3: A3: There are thousands of research Qs. The All of Us Research Hub hopes to provide answers. Once it is made available, researchers will be able to use the diverse data here to explore a wide range of biomedical + scientific hypotheses https://t.co/yNkZXZXKl9 #HITsm #JoinAllofUs |
| Brian Mack @BFMack @techguy We already are in a number of cases - Here in MI think Flint Water Crisis and the Opioid Epidemic. It's important to stipulate that it's not free. But in the overwhelming majority of cases, HIE's are non-profit organizations. So we need only cover our costs. #HITSM |
| Zamora Consulting Group @ZamoraConsGrp RT @AllofUsResearch: A3: A3: Our research program is powered by our participants. Through our online portal, you can create an account, review the consent, share your electronic health records, answer survey questions, and more. https://t.co/DoNHubZv3D #HITsm #JoinAllofUs |
| Anthony Leon @anthonynotleon @ImmersiveLLC Is there a lack of toleration in this area now?I know there is frustration of outlandish claims that aren't delivered on. #hitsm |
| National Hispanic Council on Aging @NHCOA RT @HHS_HealthReg2: Certain populations can be more at risk for certain diseases—such as diabetes, HIV, and heart disease—than others. So it is important for patients in those populations who are more likely to be treated for a condition to be included in a trial. #HITsm #JoinAllofUs |
| John Lynn @techguy @anthonynotleon That's what I should have added. Will the HIEs share their data for free or will that cause an issue with their business model. #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch @techguy We agree, and already 160,000 participants have signed up! #HITsm #JoinAllofUs |
 | Alyssa Cotler @AlyssaJoy71 Super interesting chat happening right now! #HITsm #JoinAllOfUs |
| ResearchAmerica @ResearchAmerica T4: Our January 2018 survey shows there is strong support for investing in #migraine research among the American people. Will migraine research be included in @Allofus? #HITsm https://t.co/X2QZNJgaX2 |
| John Lynn @techguy This is a challenging idea. #HITsm #JoinAllofUs |
| Melissa Cole @ColeFACHE RT @stephaniecrabb: Tbe #datamonetization train already left the station. This is why documented and published codes of #dataethics, more clear and crisp than the NOPP, are critical. #HITsm |
| HHS OASH Region II @HHS_HealthReg2 Increasing the racial & ethnic diversity of the health research is essential for the adequate care to our nation’s minority communities. The“one-size fits-all-approach” treatments can be very successful for some patients but not for others, such as minorities. #HITsm #JoinAllofUs |
| John Lynn @techguy RT @AllofUsResearch: @techguy We agree, and already 160,000 participants have signed up! #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch RT @NIMHD: A4: A4: Participants will share information about many aspects of their health and lives. Considering these factors could yield important advances in addressing health disparities. More on why NIMHD supports @AllofUsResearch: https://t.co/vTGMOIqYVC #HITsm https://t.co/aivQShFC9w |
| EMR, EHR and HIT @ehrandhit RT @HHS_HealthReg2: Increasing the racial & ethnic diversity of the health research is essential for the adequate care to our nation’s minority communities. The“one-size fits-all-approach” treatments can be very successful for some patients but not for others, such as minorities. #HITsm #JoinAllofUs |
| Healthcare Scene @HealthcareScene RT @stephaniecrabb: Tbe #datamonetization train already left the station. This is why documented and published codes of #dataethics, more clear and crisp than the NOPP, are critical. #HITsm |
| HOPE NBCUSA @HOPE_NBCUSA A4: From the 1 million or more people who #JoinAllofUs, we hope to have better tests to see if people are sick or at risk of getting sick. @AllofUsResearch #HITsm #HOPENBC https://t.co/lva8Ca7dYE |
| EMR, EHR and HIT @ehrandhit RT @ResearchAmerica: T4: T4: Our January 2018 survey shows there is strong support for investing in #migraine research among the American people. Will migraine research be included in @Allofus? #HITsm https://t.co/X2QZNJgaX2 |
 | Melissa B Davis, PhD @MeliD32 RT @NIMHD: A4: A4: Participants will share information about many aspects of their health and lives. Considering these factors could yield important advances in addressing health disparities. More on why NIMHD supports @AllofUsResearch: https://t.co/vTGMOIqYVC #HITsm https://t.co/aivQShFC9w |
| Anthony Leon @anthonynotleon @HealthcareScene @AllofUsResearch T4: Trends not yet seen. We're familiar with #sdoh but what else is missing from that?Can it go farther and see other trends not yet linked? #hitsm |
| Healthcare Scene @HealthcareScene @AlyssaJoy71 Thanks for joining the chat. #HITsm #JoinAllofUs |
| Alyssa Cotler @AlyssaJoy71 A4: The gold standard of #breastcancer prevention did not work for me. I hope that @AllofUsResearch will help my kids know how they can better protect themselves. #HITsm #JoinAllOfUs #BCSM |
| EMR, EHR and HIT @ehrandhit RT @ColeFACHE: How can we become more personalized in our healthcare delivery with @AllofUsUCSD project - reduce cost, and support quality cc: @EricTopol #HITsm |
| ResearchAmerica @ResearchAmerica RT @NIMHDirector: Technology has opened a new frontier in mental health support and data collection, but what is the role of technology in the future of precision medicine? #JoinAllofUs today, at 12 PM ET for an #HITsm chat hosted by @AllofUsResearch + @HealthcareScene! https://t.co/vvYj96F9Bt |
| ResearchAmerica @ResearchAmerica RT @AllofUsMSM: @HealthcareScene @AllofUsResearch Technology is a great tool that is becoming more and more accessible. Tech in combination with face to face engagement can be a real powerful to engage and educate on the importance of precision medicine. #HITsm #JoinAllofUs @AllofUsSEEC @MSMEDUresearch |
| ResearchAmerica @ResearchAmerica RT @HHS_HealthReg2: The @AllofUsResearch Program is powered by its participants. The health information and biosamples they contribute may provide insights into the differences in our physiology, risk of disease, and response to treatments. #HITsm #JoinAllofUs https://t.co/c0bPN3ogbA |
| AllofUsResearch @AllofUsResearch RT @HHS_HealthReg2: Increasing the racial & ethnic diversity of the health research is essential for the adequate care to our nation’s minority communities. The“one-size fits-all-approach” treatments can be very successful for some patients but not for others, such as minorities. #HITsm #JoinAllofUs |
| ResearchAmerica @ResearchAmerica RT @NIMHD: A1: A1: #HealthIT has tremendous potential for increasing #HealthEquity for racial and ethnic populations. That’s why we’re funding Health IT research that addresses minority health and health disparities. Apply today! https://t.co/iNkoEwPcUy #HITsm https://t.co/X7sPqrRV7O |
| AllofUsResearch @AllofUsResearch RT @AlyssaJoy71: A4: A4: The gold standard of #breastcancer prevention did not work for me. I hope that @AllofUsResearch will help my kids know how they can better protect themselves. #HITsm #JoinAllOfUs #BCSM |
| John Lynn @techguy @ColtonOrtolf @haroldsmith3rd @ehrandhit Harold makes an interesting point though. If patients donate the data which helps pharma create the precision medicine therapies for less, then they should have to charge the patient less. #HITsm #JoinAllofUs |
| Brian Mack @BFMack T4: Achieving the vision of a self-sustaining holistic WELL-care system requires coordinated engagement at every level - patients, providers, payers, & policy. A DEEP level of understanding is needed to get us there. THAT is what excites me about @AllofUsResearch #HITsm |
| Healthcare Scene @HealthcareScene T5: How can the @AllofUsResearch Program keep participant data safe? What would be your expectations of the program in regards to privacy and security? #HITsm #JoinAllofUs https://t.co/wxnOuIfshE |
| AllofUsResearch @AllofUsResearch @ajcalac @techguy We recognize that tribal communities have valid concerns about health research due to historical research transgressions. All of Us has always been committed to tribal consultation + planning is underway. See our progress to date: https://t.co/rCBkDV0Xqv #HITsm #JoinAllofUs |
| Anthony Leon @anthonynotleon @techguy It's a catch 22, right? The data will help them see a trend for a certain disease that can be addressed and help a larger population but at the same time, they can then set the price for said treatment/cure. It'll be in the name of profit either way but it can help #hitsm |
| John Lynn @techguy RT @EMRAnswers: |
 | Katie Baca-Motes @BacaMotes RT @EvanMuse: A2: A2: As a clinician and researcher I am looking forward to breaking the mold of traditional studies, participant partnerships and data sharing in @AllofUsResearch is key to innovation #HITsm |
| AllofUsResearch @AllofUsResearch A5: All of Us follows strict security protocols and processes to ensure that participant information remains private. https://t.co/31gXT8DFYw #HITsm #JoinAllofUs |
| Stephanie Crabb @stephaniecrabb Or better yet, share in the revenues. THIS is what we call consumer closed-loop #datamonetization. #HITsm |
| AllofUsUCSD @AllofUsUCSD T5: Best practices in security and privacy protection must be followed wherever data or biospecimens are handled. I expect data and biospecimens to be guarded with state-of-the-art techniques and algorithms to protect against privacy breaches. – Dr. Ohno-Machado #HITsm |
| Vibrent Health @VibrentHealth @HealthcareScene @AllofUsResearch A5 @AllofUsResearch Program keeps participant data safe through multilayer #cybersecurity implementation that protects individual, institutional, and study data. Keeping data safe is our priority @VibrentHealth so we can build trust with the research participants #HITsm |
| HHS OASH Region II @HHS_HealthReg2 Data Is Protected: Personal information, like your name, address, and other things that easily identify participants will be removed from all data. Samples—also without any names on them—are stored in a secure biobank. #HITsm #JoinAllofUs |
 | GenomeJenkins @tonyjen06921632 #hitsm the @AllofUsResearch is a great initiative but needs to focus on how results will benefit individual communities directly @kgebo minorities want tangible results like @ericdishman obtained not "fun" digital tools #purposedrivenresearch #inclusionmeansmorethanjustasample |
| AllofUsResearch @AllofUsResearch A5: Participant data is stored in a secure cloud-based database, managed by the All of Us Data and Research Center at Vanderbilt University Medical Center (@VUMChealth). #HITsm #JoinAllofUs |
| Vibrent Health @VibrentHealth A2: Dr. Wade @VibrentHealth says: The #AoURP provides a new research paradigm that allows participants to share in all aspects of the research enterprise. This involvement enhances adherence and sustains engagement.#Hitsm |
| John Lynn @techguy It's a challenging question. The one side of me wants the program to tell me where my data is being used. The other side of me says that I want my data anonymized so they have no idea how it's being used. #HITsm #JoinAllofUs https://t.co/4OyEbgVorr |
| HCMStrategists @HCMStrat RT @AllofUsResearch: A5: A5: All of Us follows strict security protocols and processes to ensure that participant information remains private. https://t.co/31gXT8DFYw #HITsm #JoinAllofUs |
| Healthcare Scene @HealthcareScene Thanks for sharing. Don't forget to add the #HITsm hashtag so everyone can see your replies. https://t.co/0tKMlsDI6k |
| Vibrent Health @VibrentHealth A2: Dr. Wade @VibrentHealth says: Innovative tools, technology and automation are critical, but closing the access gap to participants requires a broader approach that is personalized, intelligent, actionable and addresses participants.#HITsm |
| Brian Mack @BFMack @EMRAnswers I completely agree Linda! We ARE making strides in the areas of behavioral and substance related data sharing & accessibility, but there are miles to go before we sleep! It is best to go slow IMO, and be ABSOLUTELY sure we get it right for patients. #HITSM |
| EMR, EHR and HIT @ehrandhit RT @tonyjen06921632: #hitsm the @AllofUsResearch is a great initiative but needs to focus on how results will benefit individual communities directly @kgebo minorities want tangible results like @ericdishman obtained not "fun" digital tools #purposedrivenresearch #inclusionmeansmorethanjustasample |
| Melissa Cole @ColeFACHE Yes! @ericdishman your @TEDTalks inspiring. We use them in class https://t.co/kN3ER3mkii #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @hwitteman A personal example; I have an extremely rare blood type, traced back to north of Europe. Its dominant in my fam, rare in the world. I get inundated w/ calls to donate blood to studies just from working w/ 1 org who promised not to share. #Hitsm |
| Stephanie Crabb @stephaniecrabb Ha! That would be #usesanddisclosures on steroids! We cannot even get the basic requirement defined in #HIPAA and it’s been how many years?!?! #HITsm |
| John Lynn @techguy @stephaniecrabb I think sharing in the revenues is a false premise since individual data isn't worth much. However, would I share my data with the idea that the people who really need the treatments get it at lowered costs (and that may or may not be me)? I think so. #HITsm #JoinAllofUs |
| Anthony Leon @anthonynotleon @HealthcareScene @AllofUsResearch T5: My expectations are they keep it as safe as possible. Assume all the Soc 2 compliance in a colo bunker (or AWS) and the standard by which most orgs abide by today. What I want, just be upfront with who you're going to sell to incl behavioral data. Don't disguise it #hitsm |
| Stephanie Crabb @stephaniecrabb Think bigger @techguy! If we can do it in retail, we can do it in healthcare! ##HITsm |
| John Lynn @techguy Thanks for sharing. Don't forget to add the #HITsm hashtag so all can see your replies. |
| National Hispanic Council on Aging @NHCOA R5: El programa @AllofUsResearch codifica toda la información de los participantes, y manteniene confidencial y por separado su información de salud, sus nombres, direcciones y otra información que puedan identificarlos. #HITsm #JoinAllofUs https://t.co/sVfDBudHkB |
| John Lynn @techguy Yep. That shows how extremely challenging it is. #HITsm #JoinAllofUs |
| Kelly Gebo @kgebo @ShereesePubHlth We acknowledge some researchers have acted inappropriately in the past but the @AllofUsResearch Program is committed to being inclusive and transparent. We partner with diverse groups to gather community input + support outreach. https://t.co/HwFRqKA3OQ #HITsm |
| Brian Mack @BFMack T5: This technical complexity of this issue is well beyond my expertise. But from a communications/perception perspective, the real key to success is "How does the @AllofUsResearch Program instill confidence in the public that participant data is safe?" #HITsm |
| in the Golden State @ButtercupD RT @HealthcareScene: T5: T5: How can the @AllofUsResearch Program keep participant data safe? What would be your expectations of the program in regards to privacy and security? #HITsm #JoinAllofUs https://t.co/wxnOuIfshE |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @anthonynotleon @HealthcareScene @AllofUsResearch Abso-freaking-lutely. #Hitsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @kgebo: @ShereesePubHlth We acknowledge some researchers have acted inappropriately in the past but the @AllofUsResearch Program is committed to being inclusive and transparent. We partner with diverse groups to gather community input + support outreach. https://t.co/HwFRqKA3OQ #HITsm |
| John Lynn @techguy Fascinating. What's the blood type? We want people to be able to find you on Twitter for that blood type too ;-) #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch RT @AllofUsUCSD: T5: T5: Best practices in security and privacy protection must be followed wherever data or biospecimens are handled. I expect data and biospecimens to be guarded with state-of-the-art techniques and algorithms to protect against privacy breaches. – Dr. Ohno-Machado #HITsm |
| AllofUsResearch @AllofUsResearch RT @ColeFACHE: Yes! @ericdishman your @TEDTalks inspiring. We use them in class https://t.co/kN3ER3mkii #HITsm |
| AllofUsResearch @AllofUsResearch RT @NHCOA: R5: R5: El programa @AllofUsResearch codifica toda la información de los participantes, y manteniene confidencial y por separado su información de salud, sus nombres, direcciones y otra información que puedan identificarlos. #HITsm #JoinAllofUs https://t.co/sVfDBudHkB |
| John Lynn @techguy @stephaniecrabb Where do you see this happening in retail? #HITsm #JoinAllofUs |
| Vibrent Health @VibrentHealth @techguy @AllofUsResearch PJ @VibrentHealth says: We agree and 160,000 participants have already signed up. #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @BFMack: T5: T5: This technical complexity of this issue is well beyond my expertise. But from a communications/perception perspective, the real key to success is "How does the @AllofUsResearch Program instill confidence in the public that participant data is safe?" #HITsm |
| Stephanie Crabb @stephaniecrabb @techguy eBates. #HITsm |
| Healthcare Scene @HealthcareScene Bonus: What are some reasons you use mobile apps and devices to track your health? #HITsm #JoinAllofUs https://t.co/gT0fS1zFcp |
| Brian Mack @BFMack T5: @AllofUsResearch can have the most sophisticated data security systems and processes in the world, but ample evidence is demonstrated on a daily basis that it is rarely enough... There are no 100% Guaranteed Secure systems. Period. #HITsm |
| Kelly Gebo @kgebo A5: Personal info that could identify you, like your name, birth date, + SSN, will be removed before we make your data accessible to researchers. More from @AllofUsResearch Director @EricDishman about our program + privacy https://t.co/mbJ7aiYnxH #HITsm #JoinAllofUs |
| John Lynn @techguy Does @allofusresearch publish all of the organizations that are using the data and how they're using it? Seems like that transparency would be valuable to those leary of participating. #HITsm #JoinAllofUs |
 | Lea Chatham @LeaChatham RT @VibrentHealth: A1 Nearly every aspect of #precisionmedicine depends on the use of technology. New and innovative technologies, such as precision recruitment and participant-centric data collection and engagement tools and analytics, empower the @AllofUsResearch Program #VibrentHealth #HITsm |
| AllofUsResearch @AllofUsResearch A6: Digital health technologies, like mobile apps and wearable devices, can collect data in real time outside of a hospital or clinic, expanding our knowledge about how people live, work, and play. #HITsm #JoinAllofUs |
| Lea Chatham @LeaChatham RT @VibrentHealth: A1 Technology is rapidly becoming an equalizer across diverse populations. Highly capable mobile computing devices, wearables and #EHRs are increasingly used in digital health research to advance #precisionmedicine #VibrentHealth #HITsm |
| HOPE NBCUSA @HOPE_NBCUSA A5: Participant data is encrypted and all obvious identifiers are removed from data used for research. This means names, addresses, and other identifying information is separate from the health information.@AllofUsResearch #HITsm #JoinAllofUs #HOPENBC https://t.co/lva8Ca7dYE |
| AllofUsUCSD @AllofUsUCSD Bonus: Every person is different. Making personalized decisions based on data is better than using cookie-cutter approaches – Dr. Ohno-Machado #HITsm #JoinAllofUs |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @AllofUsResearch: A6: A6: Digital health technologies, like mobile apps and wearable devices, can collect data in real time outside of a hospital or clinic, expanding our knowledge about how people live, work, and play. #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch A6: Mobile apps and devices can collect information about physical activity, sleep, weight, heart rate, nutrition, and water intake. These types of data can help researchers learn more about why people get sick or stay healthy. #HITsm #JoinAllofUs |
| John Lynn @techguy I have to admit that I've tried a few, but nothing has stuck. The only one that remotely does is that Google knows everywhere I've ever been. That could help with some SDOH analysis. I still need invisibles. #LazyHealthData #HITsm #JoinAllofUs https://t.co/jUDKZmwiyy |
| Alyssa Cotler @AlyssaJoy71 I use my @Garmin religiously to track my exercise, steps, and sleep each day as well as over time.@AllofUsResearch can now link @fitbit data to give participants a way to share even more info. #HITsm #JoinAllofUs |
| EMR, EHR and HIT @ehrandhit RT @AllofUsUCSD: Bonus: Bonus: Every person is different. Making personalized decisions based on data is better than using cookie-cutter approaches – Dr. Ohno-Machado #HITsm #JoinAllofUs |
| EMR, EHR and HIT @ehrandhit RT @HOPE_NBCUSA: A5: A5: Participant data is encrypted and all obvious identifiers are removed from data used for research. This means names, addresses, and other identifying information is separate from the health information.@AllofUsResearch #HITsm #JoinAllofUs #HOPENBC https://t.co/lva8Ca7dYE |
| Healthcare Scene @HealthcareScene RT @VibrentHealth: A1 Technology is rapidly becoming an equalizer across diverse populations. Highly capable mobile computing devices, wearables and #EHRs are increasingly used in digital health research to advance #precisionmedicine #VibrentHealth #HITsm |
| Kelly Gebo @kgebo A6: Digital health technology allows for participants to contribute where they are, when they can, and in natural settings. #HITsm #JoinAllofUs |
| National Hispanic Council on Aging @NHCOA R6: El objetivo del programa @AllofUsResearch es mejorar la salud para todos. Usted también puede aprender a usar aparatos móviles, teléfonos celulares y tabletas para poner en práctica hábitos más saludables. #HITsm #JoinAllofU https://t.co/Q25YlcTNMt |
| Anthony Leon @anthonynotleon @ShereesePubHlth @HealthcareScene @AllofUsResearch As a consumer, I still used 23andMe after the nonsense. The value in the info was worth more than the bad taste in my mouth. I opted out (I still know they're going to sell it) but they do not have my trust. If AllofUs wants trust/buy in, show the value #hitsm |
| HCMStrategists @HCMStrat RT @AllofUsResearch: A6: A6: Digital health technologies, like mobile apps and wearable devices, can collect data in real time outside of a hospital or clinic, expanding our knowledge about how people live, work, and play. #HITsm #JoinAllofUs |
| Evan D. Muse @EvanMuse @kgebo @AllofUsResearch @AllofUsResearch leadership has made #datasecurity a priority from day 1 showing how the privacy of our participant partners comes first #HITsm |
| John Lynn @techguy Gracias. #HITsm #JoinAllofUs |
| Immersive @ImmersiveLLC A5: The #digitalhealth industry is banking on apps and devices fostering adherence to treatment plans (and all of the benefits associated to patient, provider and payer), supporting early detection, promoting health and wellness, just to name a few. #HITsm |
| Andrew LeBlanc @andrewrleblanc RT @AlyssaJoy71: I use my @Garmin religiously to track my exercise, steps, and sleep each day as well as over time.@AllofUsResearch can now link @fitbit data to give participants a way to share even more info. #HITsm #JoinAllofUs |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Bonus: I have been using the Google Fit app on my phone and it's effortless, so I love it. #hitsm |
| Vibrent Health @VibrentHealth @HealthcareScene Bonus: Mobile apps and devices can help people track health goals, sleep, steps, eating habits, fitness and blood pressure. Such data can give them and their healthcare provider greater insights on the entire picture of their health. #VibrentHealth #HITsm https://t.co/9gHNSrb1Ze |
| AllofUsResearch @AllofUsResearch @stephaniecrabb To that point, we've developed in-depth informed consent materials for people to fully understand what participation entails; once the Research Hub launches, we'll post researchers' names & descriptions of their studies so the public can know how data is being used. #HITsm |
| Andrew LeBlanc @andrewrleblanc RT @kgebo: A6: A6: Digital health technology allows for participants to contribute where they are, when they can, and in natural settings. #HITsm #JoinAllofUs |
| Kelly Gebo @kgebo A6. There is still so much we don’t know. To help us learn how wearable devices can contribute to research, we’re working with @Fitbit to kick off our digital health technology program https://t.co/qIFCZDQkdB #HITsm |
| John Lynn @techguy Many would argue including my friend @praxagora that if you have enough data, then it can often be reidentified. That's the fear of many. #HITsm #JoinAllofUs |
| HHS OASH Region II @HHS_HealthReg2 Mobile apps are a great way to keep track of your food intake, sleep, and exercise activities. #HITsm #JoinAllofUs https://t.co/ZR9ba2i0vS |
| in the Golden State @ButtercupD I wear a fitbit and track my activity on my mobile. I also have a couple of meditation apps, an app that i can access with my health info through the medical group of my Dr., and my emergency info on the apple health ID app. #hitsm #joinallofus |
| Healthcare Scene @HealthcareScene Let's give a massive thank you to @AllofUsResearch for hosting this week's #HITsm chat and to all of you who participated. https://t.co/3AqhN56Fac |
| Healthcare Scene @HealthcareScene Join us for next week's #HITsm chat on "Disruptive Influences in Healthcare" Our host for the chat will be @healthcare_kate |
| ResearchAmerica @ResearchAmerica RT @AllofUsResearch: A6: A6: Digital health technologies, like mobile apps and wearable devices, can collect data in real time outside of a hospital or clinic, expanding our knowledge about how people live, work, and play. #HITsm #JoinAllofUs |
| Brian Mack @BFMack T5: Even with the risks, people are willing to help to serve a greater good. How will @AllofUsResearch get their paticipants INVESTED in the project? Be open and transparent with regualr communication. If something goes wrong be honest, own it & make amends... #HITsm |
| Stephanie Crabb @stephaniecrabb @anthonynotleon @ShereesePubHlth @HealthcareScene @AllofUsResearch Errrrr. Please don’t do the Facebook 10-year meme game! #HITsm |
| National Hispanic Council on Aging @NHCOA RT @AllofUsResearch: A6: A6: Mobile apps and devices can collect information about physical activity, sleep, weight, heart rate, nutrition, and water intake. These types of data can help researchers learn more about why people get sick or stay healthy. #HITsm #JoinAllofUs |
| Kelly Gebo @kgebo A6. We are also evaluating other technologies that may be included in the @AllofUsResearch Program in the future. #HITsm #JoinAllofUs |
| John Lynn @techguy I'd love to see partnerships with companies that are even more clinically relevant like @alivecor for example. #HITsm #JoinAllofUs |
| Andrew LeBlanc @andrewrleblanc RT @kgebo: A6. There is still so much we don’t know. To help us learn how wearable devices can contribute to research, we’re working with @Fitbit to kick off our digital health technology program https://t.co/qIFCZDQkdB #HITsm |
| AllofUsUCSD @AllofUsUCSD Thank you @healthcarescene for the chat! #HITsm #JoinAllofUs |
| Andrew LeBlanc @andrewrleblanc RT @kgebo: A6. We are also evaluating other technologies that may be included in the @AllofUsResearch Program in the future. #HITsm #JoinAllofUs |
| Alyssa Cotler @AlyssaJoy71 RT @kgebo: A6. We are also evaluating other technologies that may be included in the @AllofUsResearch Program in the future. #HITsm #JoinAllofUs |
| Andrew LeBlanc @andrewrleblanc RT @techguy: I'd love to see partnerships with companies that are even more clinically relevant like @alivecor for example. #HITsm #JoinAllofUs |
| John Lynn @techguy Fascinating chat. Thanks for hosting @allofusresearch and your team. #HITsm #JoinAllofUs |
| John Lynn @techguy RT @HealthcareScene: Join us for next week's #HITsm chat on "Disruptive Influences in Healthcare" Our host for the chat will be @healthcare_kate |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Have a great weekend everyone. #hitsm https://t.co/kH7bmx7dfn |
| NIDDK @NIDDKgov Continue the conversation on our Diabetes Discoveries & Practice Blog! Check out our complete video series on #diabetes prevention, care, and education in the digital age. #HITsm #JoinAllofUs https://t.co/j8A4JmT3MK |
| Vibrent Health @VibrentHealth @HealthcareScene Bonus: Health trackers can help patients to become more engaged in the management of their own health and wellness. Here @VibrentHealth many of our staff wear fitness trackers to promote a culture of health and wellness #VibrentHealth #HITsm https://t.co/y7UM3RVmGl |
| Kelly Gebo @kgebo Thanks to everyone who participated! I hope we’ve inspired you to visit https://t.co/mtPKh0pUpm and #JoinAllofUs! #HITsm |
 | kpearsonb @kpearsonb RT @VibrentHealth: @HealthcareScene Bonus: @HealthcareScene Bonus: Mobile apps and devices can help people track health goals, sleep, steps, eating habits, fitness and blood pressure. Such data can give them and their healthcare provider greater insights on the entire picture of their health. #VibrentHealth #HITsm https://t.co/9gHNSrb1Ze |
| AllofUsResearch @AllofUsResearch Thank you to @healthcarescene for hosting this chat, and to our colleagues @EvanMuse, @kgebo, @ericdishman, @VibrentHealth, @Walgreens and everyone for joining the conversation! #HITsm #JoinAllofUs |
| Healthcare Scene @HealthcareScene In case you missed today's #HITsm chat with @AllofUsResearch you can read the full transcript of the chat here: https://t.co/H4eX8voE2H #joinallofus |
| Healthcare Scene @HealthcareScene RT @AllofUsResearch: Thank you to @healthcarescene for hosting this chat, and to our colleagues @EvanMuse, @kgebo, @ericdishman, @VibrentHealth, @Walgreens and everyone for joining the conversation! #HITsm #JoinAllofUs |
| ResearchAmerica @ResearchAmerica RT @AllofUsUCSD: T5: T5: Best practices in security and privacy protection must be followed wherever data or biospecimens are handled. I expect data and biospecimens to be guarded with state-of-the-art techniques and algorithms to protect against privacy breaches. – Dr. Ohno-Machado #HITsm |
| Brian Mack @BFMack BONUS: The actual health benefits of personal tracking technology is often an added benefit. In my past experience, gamification, competition, and merit-based incentives, and accountability partnerships were EXTREMELY effective in maintaining sustained engagment. #HITsm |
| HOPE NBCUSA @HOPE_NBCUSA A6: Mobile devices can be helpful in accurately collecting data in real time without the participant having to visit a provider to have certain types of data collected.@AllofUsResearch #HITsm #JoinAllofUs #HOPENBC https://t.co/lva8Ca7dYE |
| Anthony Leon @anthonynotleon @stephaniecrabb @ShereesePubHlth @HealthcareScene @AllofUsResearch I'm familiar with most of the concerns and what not. Luckily my face is so inconsistent with the beard, weight, etc that I'll just throw off the algo and like most things in life, be the outlier ;) #hitsm |
| Andrew LeBlanc @andrewrleblanc RT @kgebo: Thanks to everyone who participated! I hope we’ve inspired you to visit https://t.co/mtPKh0pUpm and #JoinAllofUs! #HITsm |
| All of Us SEEC @AllofUsSEEC A special thank you to @AllofUsResearch & @HealthcareScene for hosting the #HITsm chat! To learn more about #JoinAllofUs and how we are working to advance research breakthroughs, visit https://t.co/mDwjROhboP. @AllofUsUM @AllofUsEmory @AllofUsMSM @UFHealth |
| kpearsonb @kpearsonb RT @VibrentHealth: @HealthcareScene Bonus: @HealthcareScene Bonus: Health trackers can help patients to become more engaged in the management of their own health and wellness. Here @VibrentHealth many of our staff wear fitness trackers to promote a culture of health and wellness #VibrentHealth #HITsm https://t.co/y7UM3RVmGl |
 | ًSupra ؚ @hitconsultant Healthcare Data Platform Innovaccer Closes $35M Series B Round https://t.co/iDhK13l918 #hitsm #healthIT #startups |
| AllofUsResearch @AllofUsResearch RT @VibrentHealth: @HealthcareScene Bonus: @HealthcareScene Bonus: Mobile apps and devices can help people track health goals, sleep, steps, eating habits, fitness and blood pressure. Such data can give them and their healthcare provider greater insights on the entire picture of their health. #VibrentHealth #HITsm https://t.co/9gHNSrb1Ze |
| John Lynn @techguy @ShereesePubHlth Same to you! Always fun tweeting with you. #HITsm |
| AllofUsResearch @AllofUsResearch @MargaretAinDC Yes, we agree. Our security & privacy safeguards are something @ericdishman regularly highlights in his vlog updates, and we'll be releasing more details in the lead-up to the launch of the Research Hub. #HITsm #JoinAllofUs |
| John Lynn @techguy Glad you're setting a high bar for yourself. #HITsm #JoinAllofUs |
| Brian Mack @BFMack BONUS: It was also fascinating for us to learn that in side-by-side trials, mobile-app based health tracking technology was WAY more effective when combined with telephonic health coaching/care management (human factor again), than with technology alone. #HITsm |
| John Lynn @techguy RT @HealthcareScene: In case you missed today's #HITsm chat with @AllofUsResearch you can read the full transcript of the chat here: In case you missed today's #HITsm chat with @AllofUsResearch you can read the full transcript of the chat here: https://t.co/H4eX8voE2H #joinallofus |
| Vibrent Health @VibrentHealth Thanks from PJ at @VibrentHealth. It was an enjoyable conversation and we look forward to more. #HITsm |
 | Bob Brown @ReasObBob @techguy @stephaniecrabb Depends on the overall information architecture and data model. With the right ones, it could work. The current de facto healthcare systems incarnation does not lend itself to such activity. #HITsm |
| All of Us UMiami @AllofUsUM RT @AllofUsSEEC: A special thank you to @AllofUsResearch & @HealthcareScene for hosting the #HITsm chat! To learn more about #JoinAllofUs and how we are working to advance research breakthroughs, visit https://t.co/mDwjROhboP. @AllofUsUM @AllofUsEmory @AllofUsMSM @UFHealth |
 | Dr. Sue Kirkman @drsuek RT @NIDDKgov: #HealthProfessionals: #HealthProfessionals: Explore the potential of digital health technology. Visit our blog to learn about benefits, challenges, and limitations of using digital tools and technologies in diabetes care. #HITsm #JoinAllofUs https://t.co/QG74E7CnFk |
| Brian Mack @BFMack Thanks @techguy @HealthcareScene and @AllofUsResearch for a FASCINATING chat! Have a great weekend everybody! #JustKeepSwinning! #HITsm https://t.co/MO7A2aRQVt |
| HCMStrategists @HCMStrat RT @AllofUsResearch: Thank you to @healthcarescene for hosting this chat, and to our colleagues @EvanMuse, @kgebo, @ericdishman, @VibrentHealth, @Walgreens and everyone for joining the conversation! #HITsm #JoinAllofUs |
| AllofUsResearch @AllofUsResearch @ResearchAmerica @Allofus We're building a broad resource to enable research on thousands of studies, across many different health conditions. We look forward to seeing what questions researchers bring to the dataset. #HITsm #JoinAllofUs |
 | Graphium Health @GraphiumHealth RT @EMRAnswers: |
| ResearchAmerica @ResearchAmerica RT @AllofUsResearch: @ResearchAmerica @Allofus We're building a broad resource to enable research on thousands of studies, across many different health conditions. We look forward to seeing what questions researchers bring to the dataset. #HITsm #JoinAllofUs |
 | Merlin Tensy @MST_Consultant hitconsultant: Healthcare Data Platform Innovaccer Closes $35M Series B Round https://t.co/2H1956L13o #hitsm #healthIT #startups |
| Anthony Leon @anthonynotleon @HealthcareScene Bonus- It keeps me engaged and on track. Steps, activity per hour, intake (if I log it), etc. I'm also using it for telehealth with my nutritionist to keep me on track as well as @yourspindoctor to keep me moving freely. If life happens on mobile these days, be there #hitsm |
 | PublicHealthMaps @PublicHealthMap RT @HealthcareScene: .@AllofUsResearch is integrating digital health technology into its program and we are excited to learn more. Join us for today's chat and take part in the discussion: https://t.co/kbZYz2Flkh #HITsm #JoinAllofUs #PrecisionMedicine |
| PublicHealthMaps @PublicHealthMap RT @HHSRegion8: TODAY at 12PM ET: TODAY at 12PM ET: Join us, @AllofUsResearch + @HealthcareScene for a Twitter chat on digital health technology + the future of #precisionmedicine. Use #HITsm to join the conversation. https://t.co/V0yGNj0980 #JoinAllofUs https://t.co/NwL6dXsPot |
| PublicHealthMaps @PublicHealthMap RT @PhD_Leigh: @NIH & @fitbit join forces to collect #health #data in @AllofUsResearch, now BYO-Device. 🚶♀️⌚️🔬 Join the #TwitterChat on Friday, 1/18 @ Noon. 📲 #HITsm 💻 @kgebo @EvanMuse @VibrentHealth 🧲 #BigData #PhysicalActivity #Sleep #Heart #DigitalHealth 📰 https://t.co/WDVKEus7bM https://t.co/y2cgwVJJ2G |
| PublicHealthMaps @PublicHealthMap RT @NIH_ODS: Mark your calendars! On Friday 1/18 at 12 PM ET, join @AllofUsResearch, + @HealthcareScene for a Twitter chat on digital health technology + its role in the future of health research. Use #HITsm to join the conversation! https://t.co/sTmnwzJ5PJ #JoinAllofUs |
| PublicHealthMaps @PublicHealthMap RT @HHSRegion7: Mark your calendars! On Friday, January 18 at 12 PM ET, we’re joining @AllofUsResearch + @HealthcareScene for a Twitter chat on digital health technology and its role in the future of health research. Use #HITsm to participate! https://t.co/UoS9xWsiwQ #JoinAllofUs https://t.co/R63bRa12D0 |
 | rajkmd @rajkmd RT @EvanMuse: A1: A1: Connecting health records + genomics is vital for #PrecisionMedicine but just think of all the time you spend outside of t/ doctors office! DigMed +health tech fills this space. #HITsm #JoinAllofUs |
| Brian Mack @BFMack @stephaniecrabb @anthonynotleon @ShereesePubHlth @HealthcareScene @AllofUsResearch Stephanie, does this one count? 😂Cuz it's the one I posted! #HITSM https://t.co/sMFZN0OmsR |
#HITsm content from Twitter.