#HITsm Transcript
Healthcare social media transcript of the #HITsm hashtag.
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See #HITsm Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: Look what @BTWFoundation shared before I host the #HITsm chat about the power of collaboration and community. in 14 minutes... |
 | Healthcare Scene @HealthcareScene Welcome to this week's #HITsm chat hosted by @LAlupusLady on the topic of “Awareness and Social Media Fundamentals for Patient Communities” Details: https://t.co/MqBxxjM0pU https://t.co/YgKFaHekeo |
| Healthcare Scene @HealthcareScene Let's take 5 min to introduce ourselves. Who are you? What do you do? Where are you from? What's your favorite thing that's purple? @lalupuslady #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Great topic! Looking forward to all the insights #HITsm @evankirstel @eViRaHealth |
 | Amanda G @LAlupusLady RT @HealthcareScene: Welcome to this week's #HITsm chat hosted by @LAlupusLady on the topic of “Awareness and Social Media Fundamentals for Patient Communities” Details: https://t.co/MqBxxjM0pU https://t.co/YgKFaHekeo |
| Amanda G @LAlupusLady I am excited to host today's #HITsm Thanks to @HealthcareScene and @techguy for inviting me to share during #LupusAwarenessMonth |
 | VNAcare @VNA_SoCal Representing @VNA_SoCal here. My name is Murad, I'm a digital marketer. My favorite thing that's purple is: The Los Angeles Lakers #HITsm |
 | 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @IrmaRaste: Great topic! Looking forward to all the insights #HITsm @evankirstel @eViRaHealth |
| Amanda G @LAlupusLady RT @HealthcareScene: Let's take 5 min to introduce ourselves. Who are you? What do you do? Where are you from? What's your favorite thing that's purple? @lalupuslady #HITsm |
 | Barby Ingle Official @BarbyIngle @HealthcareScene @LAlupusLady I am @BarbyIngle Pain Patient, author, wife, friend, CHEERLEADER... come to the chat from AZ (fresh from a trip to Mexico City), My fav thing about purple is it reps many pain conditions I care about Lupus, Epilepsy, ALZ, & more! I put on purple today for Lupus Awareness! #HITsm https://t.co/bun1qI58RQ |
| Healthcare Scene @HealthcareScene T1: How can patient communities best use social media to raise awareness? @LALupusLady #HITsm https://t.co/qj95q4NgIn |
| Amanda G @LAlupusLady I am Amanda. Living with lupus and chronic pain isn't fun but awareness is. My favorite purple item has got to be... the cape! #HITsm https://t.co/QC1UNEeisp |
 | Julie Maas @JulieWMaas RT @LAlupusLady: Getting ready to host/share "Awareness and Social Media Fundamentals for Patient Communities" during #HITsm community conversation. Friday Noon Eastern/9AM Pacific https://t.co/QcBePe5Rgo |
| Amanda G @LAlupusLady RT @HealthcareScene: T1: T1: How can patient communities best use social media to raise awareness? @LALupusLady #HITsm https://t.co/qj95q4NgIn |
| Amanda G @LAlupusLady A1 Patient communities using social media to raise awareness can inform and engage the patients and the public through storytelling and facts. A great infographic such as this one via @LupusResearch can create a lasting impact. #HITsm during #LupusAwarenessMonth https://t.co/zdmAqtF0VX |
| Amanda G @LAlupusLady RT @BarbyIngle: @HealthcareScene @LAlupusLady I am @BarbyIngle Pain Patient, author, wife, friend, CHEERLEADER... come to the chat from AZ (fresh from a trip to Mexico City), My fav thing about purple is it reps many pain conditions I care about Lupus, Epilepsy, ALZ, & more! I put on purple today for Lupus Awareness! #HITsm https://t.co/bun1qI58RQ |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hi all. I'm Shereese from Maryland. #hitsm https://t.co/ieK9lErMmr |
 | John Lynn @techguy RT @HealthcareScene: Welcome to this week's #HITsm chat hosted by @LAlupusLady on the topic of “Awareness and Social Media Fundamentals for Patient Communities” Details: https://t.co/MqBxxjM0pU https://t.co/YgKFaHekeo |
| Amanda G @LAlupusLady @ShereesePubHlth Welcome to the #HITsm fun Shereese! |
 | CleanDrop @CleanDropMobile RT @ShereesePubHlth: Hi all. I'm Shereese from Maryland. #hitsm https://t.co/ieK9lErMmr |
| John Lynn @techguy Hey everyone...sorry I'm a touch late. #hitsm |
| Barby Ingle Official @BarbyIngle @HealthcareScene @LAlupusLady T1 PT Communities can best use social media 2 raise awareness by learning in’s & out’s of SoMe platforms 2 improve health outcomes, develop support network, increase personal awareness of news & discoveries around interest, motivate PTs & provide health info 2 community #HITsm |
| VNAcare @VNA_SoCal RT @LAlupusLady: A1 Patient communities using social media to raise awareness can inform and engage the patients and the public through storytelling and facts. A great infographic such as this one via @LupusResearch can create a lasting impact. #HITsm during #LupusAwarenessMonth https://t.co/zdmAqtF0VX |
| Amanda G @LAlupusLady RT @BarbyIngle: @HealthcareScene @LAlupusLady T1 PT Communities can best use social media 2 raise awareness by learning in’s & out’s of SoMe platforms 2 improve health outcomes, develop support network, increase personal awareness of news & discoveries around interest, motivate PTs & provide health info 2 community #HITsm |
| John Lynn @techguy Communities are tricky things, but discovering communities is so powerful. #hitsm |
 | HealthSparq @HealthSparq RT @HealthcareScene: T1: T1: How can patient communities best use social media to raise awareness? @LALupusLady #HITsm https://t.co/qj95q4NgIn |
| VNAcare @VNA_SoCal A1: Love what @LAlupusLady said about storytelling and educating. We are working to implement those practices into our company fabric to help more people in our communities. Infographics and videos are hot right now! #HITsm |
| John Lynn @techguy @ShereesePubHlth I just found my favorite purple. When Shereese rocks purple lipstick. #hitsm |
| Amanda G @LAlupusLady @techguy You are welcomed with a virtual hug... #HITsm https://t.co/Pexvne6Tgu |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste 👋 Irma from #Boston. #ePatient, #cancer #survivor, multiple #chronic conditions, #PatientAdvocate, #SocialMedia #influencer #HealthTech #B2B #digital #marketing #SocialMediaMarketing, member of #pinksocks tribe, supporter of #HCLDR #HITsm, mother, grandmother, #TEDx organizer. https://t.co/0WsT3i7x9j |
| Amanda G @LAlupusLady RT @VNA_SoCal: A1: A1: Love what @LAlupusLady said about storytelling and educating. We are working to implement those practices into our company fabric to help more people in our communities. Infographics and videos are hot right now! #HITsm |
 | Sakinah Kaiser (She/Her) @themuslimhippie RT @HealthcareScene: T1: T1: How can patient communities best use social media to raise awareness? @LALupusLady #HITsm https://t.co/qj95q4NgIn |
| Amanda G @LAlupusLady RT @techguy: Communities are tricky things, but discovering communities is so powerful. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste I love #purple because it’s a high vibration color, and color of the Crown Chakra. #hitsm |
 | Lisa Danielpour @LisaDani RT @BarbyIngle: @HealthcareScene @LAlupusLady T1 PT Communities can best use social media 2 raise awareness by learning in’s & out’s of SoMe platforms 2 improve health outcomes, develop support network, increase personal awareness of news & discoveries around interest, motivate PTs & provide health info 2 community #HITsm |
| Lisa Danielpour @LisaDani RT @LAlupusLady: A1 Patient communities using social media to raise awareness can inform and engage the patients and the public through storytelling and facts. A great infographic such as this one via @LupusResearch can create a lasting impact. #HITsm during #LupusAwarenessMonth https://t.co/zdmAqtF0VX |
| Amanda G @LAlupusLady May is #LupusAwarenessMonth #FibromyalgiaAwarenessMonth #ArthritisAwarenessMonth #MentalHealthAwarenessMonth and more Wishing the #HITsm community healthy and happy May! |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @techguy T1: What’s tricky about communities @techguy ? #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BarbyIngle: @HealthcareScene @LAlupusLady T1 PT Communities can best use social media 2 raise awareness by learning in’s & out’s of SoMe platforms 2 improve health outcomes, develop support network, increase personal awareness of news & discoveries around interest, motivate PTs & provide health info 2 community #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: A1 Patient communities using social media to raise awareness can inform and engage the patients and the public through storytelling and facts. A great infographic such as this one via @LupusResearch can create a lasting impact. #HITsm during #LupusAwarenessMonth https://t.co/zdmAqtF0VX |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: I am Amanda. Living with lupus and chronic pain isn't fun but awareness is. My favorite purple item has got to be... the cape! #HITsm https://t.co/QC1UNEeisp |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BarbyIngle: @HealthcareScene @LAlupusLady I am @BarbyIngle Pain Patient, author, wife, friend, CHEERLEADER... come to the chat from AZ (fresh from a trip to Mexico City), My fav thing about purple is it reps many pain conditions I care about Lupus, Epilepsy, ALZ, & more! I put on purple today for Lupus Awareness! #HITsm https://t.co/bun1qI58RQ |
| Healthcare Scene @HealthcareScene T2: What can patient communities do to reach out beyond their online constituents? @LALupusLady #HITsm https://t.co/SJ6Vsu8sVs |
| John Lynn @techguy @IrmaRaste Building communities are tricky, managing communities is tricky, and engaging communities is tricky. #hitsm Humans are tricky. |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: May is #LupusAwarenessMonth #FibromyalgiaAwarenessMonth #ArthritisAwarenessMonth #MentalHealthAwarenessMonth and more Wishing the #HITsm community healthy and happy May! |
| Amanda G @LAlupusLady RT @HealthcareScene: T2: T2: What can patient communities do to reach out beyond their online constituents? @LALupusLady #HITsm https://t.co/SJ6Vsu8sVs |
| Barby Ingle Official @BarbyIngle T2 Patient communities can reach out beyond their online communities by offering apps, interactive website, printed materials, in-person events, newsletters/email blasts, monthly planning meetings #HITsm |
| Amanda G @LAlupusLady A2 Patient communities can share information, facts and provide resources but the social aspect of #HITsm means we should as communicate as people first. I believe @jeffpulver ‘s quote “Listen. Share. Connect. Engage.” is essential in building community. #HITsm https://t.co/Xipks6btqO |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @HealthcareScene: T2: T2: What can patient communities do to reach out beyond their online constituents? @LALupusLady #HITsm https://t.co/SJ6Vsu8sVs |
| Lisa Danielpour @LisaDani T1 I love SM patient communities for 3 purposes 1) support/education/connecting with our community we share, 2) outreach/education about our condition & community externally/building awareness 3) making impact for research, inclusive hiring, employment accommodations etc #HITsm |
| John Lynn @techguy Is there a need to do this? Maybe at events. That is a powerful idea. #hitsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @LAlupusLady Hi Amanda. #hitsm |
| Amanda G @LAlupusLady A2 continued... I believe that healthcare awareness is important but that doesn’t mean it can’t be fun and engaging. Patient communities should be telling stories with heart, humor and honesty. #HITsm https://t.co/tXTWgXWzLP |
| Lisa Danielpour @LisaDani Sorry I was late, I'm an avid patient-family advocate and communications/tech professional in Cleveland for #autism #ASD, #crohns, #IBD communities #HITsm |
 | FDB (First Databank Inc.) @FDB_US Congratulations to all of these inspiring women in #HealthIT Paving the way forward for the next generation of leaders #hitsm |
| VNAcare @VNA_SoCal While you make a good point, @techguy. There are unforeseen challenges and responsibilities that come with building communities. Adapting to what is happening and listening closely to the people of the community will help leaders and readers strike gold. #HITsm |
| John Lynn @techguy @LAlupusLady Communities are a mix of interactions. If it's all topical, then it's not a great community. #hitsm |
| Amanda G @LAlupusLady RT @techguy: @LAlupusLady Communities are a mix of interactions. If it's all topical, then it's not a great community. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste T2: Stories with heart, joy and honesty is key to being heard, and compelling people to action. #storytelling #HITsm |
| Amanda G @LAlupusLady RT @IrmaRaste: T2: T2: Stories with heart, joy and honesty is key to being heard, and compelling people to action. #storytelling #HITsm |
| John Lynn @techguy @VNA_SoCal Yep. Leading a group that way is hard. #hitsm |
| Lisa Danielpour @LisaDani T2 I believe in the power of storytelling that engages, helps people understands what people w particular condition deal w & work thru - hero stories that include how others can help and benefit ie accommodations in school or workplace...with sprinkling of data to support #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste T2: It’s important to reach those that are not necessarily on #socialmedia/engaged & empowered. Although there are platforms that are perhaps more accessible, like #Facebook, which I have been ignoring in favor of #Twitter & #LinkedIn #HITsm |
| Healthcare Scene @HealthcareScene T3: What are some examples of what you’ve seen patient communities do to raise awareness using social media? @LALupusLady #HITsm https://t.co/Ks0cOU34x6 |
| VNAcare @VNA_SoCal Yup! Telling a story is a wonderful motivator for people to interact with and discuss. Sometimes it motivates them to share their own stories too. Storytelling is the gift that keeps on giving. #HITsm |
| Amanda G @LAlupusLady RT @HealthcareScene: T3: T3: What are some examples of what you’ve seen patient communities do to raise awareness using social media? @LALupusLady #HITsm https://t.co/Ks0cOU34x6 |
| Amanda G @LAlupusLady A3 The way @powerofpain engages online with webinars and patient videos sustains awareness within and beyond their #chronicpain community. A #lupus patient sharing is a fabulous tool, watch and enjoy... https://t.co/w2NDvFyEX6 via @YouTube #HITsm |
| Lisa Danielpour @LisaDani @techguy @IrmaRaste I admire people who are moderating such great SM communities. The patient communities in fb groups for example make such a difference for patients and families but for moderators I see the challenge of watching for problems ie giving medical advice, not evidence based #HITsm |
 | MariposaWarrior @LunaRivera96 RT @LAlupusLady: May is #LupusAwarenessMonth #FibromyalgiaAwarenessMonth #ArthritisAwarenessMonth #MentalHealthAwarenessMonth and more Wishing the #HITsm community healthy and happy May! |
| Barby Ingle Official @BarbyIngle T3 cont: Patient communities can also use social media to boost increase brand awareness, use visual content to develop a unique voice and personality, Share great news, celebrations, and awareness campaigns. #HITsm |
| Barby Ingle Official @BarbyIngle T3. To raise awareness n a PT community you encourage your fans & followers 2 share ur posts, create contests, use high quality content, respond w positive engagement, ask questions, show examples, use video & photo content when available, offer free demos and webinars #HITsm |
| Barby Ingle Official @BarbyIngle RT @LAlupusLady: A3 The way @powerofpain engages online with webinars and patient videos sustains awareness within and beyond their #chronicpain community. A #lupus patient sharing is a fabulous tool, watch and enjoy... https://t.co/w2NDvFyEX6 via @YouTube #HITsm |
| 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @IrmaRaste: 👋 Irma from #Boston. #ePatient, #cancer #survivor, multiple #chronic conditions, #PatientAdvocate, #SocialMedia #influencer #HealthTech #B2B #digital #marketing #SocialMediaMarketing, member of #pinksocks tribe, supporter of #HCLDR #HITsm, mother, grandmother, #TEDx organizer. https://t.co/0WsT3i7x9j |
 | International Pain Foundation® @iPainOfficial RT @LAlupusLady: A3 The way @powerofpain engages online with webinars and patient videos sustains awareness within and beyond their #chronicpain community. A #lupus patient sharing is a fabulous tool, watch and enjoy... https://t.co/w2NDvFyEX6 via @YouTube #HITsm |
| Lisa Danielpour @LisaDani @VNA_SoCal Yes, good points! It encourages people to feel more comfortable sharing their own story, that there are other people dealing with similar issues and to learn about potential supports and accommodations they might not have know about #HITsm |
| Amanda G @LAlupusLady A3 Perfect example is that whether it is #LupusAwarenessMonth or not @LupusResearch shares #LupusFactFriday supporting their community all year. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BarbyIngle: T3. To raise awareness n a PT community you encourage your fans & followers 2 share ur posts, create contests, use high quality content, respond w positive engagement, ask questions, show examples, use video & photo content when available, offer free demos and webinars #HITsm |
| VNAcare @VNA_SoCal A3: At @VNA_SoCal we often hold helpful informative seminars in public, covering a variety of topics. These help spread awareness a little, but turning the seminars into webinars could be a worthwhile approach to consider. We are certainly not experts at this, yet! #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BarbyIngle: T3 cont: T3 cont: Patient communities can also use social media to boost increase brand awareness, use visual content to develop a unique voice and personality, Share great news, celebrations, and awareness campaigns. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LisaDani: @techguy @IrmaRaste I admire people who are moderating such great SM communities. The patient communities in fb groups for example make such a difference for patients and families but for moderators I see the challenge of watching for problems ie giving medical advice, not evidence based #HITsm |
 | The HealthCare IT Experts Blog @HCITExpert [Today] #HITsm TweetChat, on Twitter at - May 17, 2019 at 10:30PM IST | Topics | @HealthcareScene - https://t.co/K7wh2zv2MQ |
| Amanda G @LAlupusLady A3 while @LupusOrg raises #LupusAwareness during May (today!) by encouraging people to #PutOnPurple #HITsm https://t.co/LU8B1qTBTb |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: A3 The way @powerofpain engages online with webinars and patient videos sustains awareness within and beyond their #chronicpain community. A #lupus patient sharing is a fabulous tool, watch and enjoy... https://t.co/w2NDvFyEX6 via @YouTube #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @VNA_SoCal: Yup! Telling a story is a wonderful motivator for people to interact with and discuss. Sometimes it motivates them to share their own stories too. Storytelling is the gift that keeps on giving. #HITsm |
| Lisa Danielpour @LisaDani T3: For the #autism #ASD community, @milestonesorg is thoughtfully sharing stories and examples and evidence-based strategies for common challenges like managing sensory issues, employment, etc. Using social media like facebook & new website. #HITsm |
| Amanda G @LAlupusLady RT @VNA_SoCal: A3: A3: At @VNA_SoCal we often hold helpful informative seminars in public, covering a variety of topics. These help spread awareness a little, but turning the seminars into webinars could be a worthwhile approach to consider. We are certainly not experts at this, yet! #HITsm |
| Amanda G @LAlupusLady RT @LisaDani: T3: T3: For the #autism #ASD community, @milestonesorg is thoughtfully sharing stories and examples and evidence-based strategies for common challenges like managing sensory issues, employment, etc. Using social media like facebook & new website. #HITsm |
| Lisa Danielpour @LisaDani T3 The @CrohnsColitisFn uses powerful stories, infographics that chart the person's journey with IBD, video and strategies to encourage sharing through their social media channels #HITsm #Crohns #CrohnsDisease #IBD |
| Amanda G @LAlupusLady RT @LisaDani: T3 The @CrohnsColitisFn uses powerful stories, infographics that chart the person's journey with IBD, video and strategies to encourage sharing through their social media channels #HITsm #Crohns #CrohnsDisease #IBD |
| Lisa Danielpour @LisaDani @LAlupusLady @LupusOrg Awesome! It's interesting that coincidentally purple is the color for #IBD #Crohns #UC awareness, too. For autism it's the colorful puzzle pieces ribbon. It think these visual keys help reinforce the message #HITsm |
 | Joy Rios @askjoyrios Hi #HITsm! I'm joining for the last half. Happy Friday. https://t.co/1unkvG2Wnb |
| Healthcare Scene @HealthcareScene T4: What organizations or patient communities best/better understand the impact social media has on awareness? Which ones should we learn from? @LAlupusLady #HITsm https://t.co/riDhKp4EIQ |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Today is also a #WorldHypertensionDay! #Patient resources👇 #HITsm |
| Joy Rios @askjoyrios T3: Being close to someone who's contracted #AFM, I've seen awareness for that disease raised through FB Groups and lots of sharing on social media. #HITsm |
| Barby Ingle Official @BarbyIngle T4 Organizations & patient communities that best understand the impact social media has on awareness include: @powerofpain @myIVcom @power4patients @forgrace @iPainFoundation @healthevoices @wegohealth @OperationRRR @CalRare @EFSouthIL @WomenEpilepsy @epilepsyadvice #HITsm |
| Amanda G @LAlupusLady Feels like my closet is full of purple clothing... #HITsm style for awareness. |
| Amanda G @LAlupusLady RT @HealthcareScene: T4: T4: What organizations or patient communities best/better understand the impact social media has on awareness? Which ones should we learn from? @LAlupusLady #HITsm https://t.co/riDhKp4EIQ |
| Joy Rios @askjoyrios #AFM info: https://t.co/zyXOUeSwko #HITsm |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T4 Organizations & patient communities that best understand the impact social media has on awareness include: T4 Organizations & patient communities that best understand the impact social media has on awareness include: @powerofpain @myIVcom @power4patients @forgrace @iPainFoundation @healthevoices @wegohealth @OperationRRR @CalRare @EFSouthIL @WomenEpilepsy @epilepsyadvice #HITsm |
 | iPain Living Magazine @iPainLivingMag RT @BarbyIngle: T4 Organizations & patient communities that best understand the impact social media has on awareness include: T4 Organizations & patient communities that best understand the impact social media has on awareness include: @powerofpain @myIVcom @power4patients @forgrace @iPainFoundation @healthevoices @wegohealth @OperationRRR @CalRare @EFSouthIL @WomenEpilepsy @epilepsyadvice #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste T3: Campaign example from #WorldHypertensionDay today: focus on the numbers. #hitsm |
| Amanda G @LAlupusLady A4 For #lupus @LupusResearch @LupusOrg and @LupusLA are really connecting and engaging the community of patients while providing resources and support. #HITsm https://t.co/L9pO73cev5 |
| Lisa Danielpour @LisaDani @VNA_SoCal Educational events like seminars are so helpful. @milestonesorg holds Milestones National Conference bringing together 1200 families, individuals w #autism & professionals to learn, connect and hear from national experts. People w #ASD speak at the conference, so powerful #HITsm |
| Joy Rios @askjoyrios And lots of personal stories about others contracting it, the advocacy work, and more here: https://t.co/nbqhZ571L4 #HITsm |
| Lisa Danielpour @LisaDani @LAlupusLady That's fabulous! I love purple so it works out well! #HITsm |
| Amanda G @LAlupusLady A4 Sharing my #CKShoutOutTo @BTWFoundation using social media, research and developing programs that empower youth with mental health resources #teenMHFA and @channelkindness #HITsm |
 | DbaRBABancorpNewYorkCity @rbabanksoleprop RT @IrmaRaste: T3: Campaign example from #WorldHypertensionDay today: T3: Campaign example from #WorldHypertensionDay today: focus on the numbers. #hitsm |
| Joy Rios @askjoyrios @LisaDani Do you find that many people who experience rare conditions, diseases, major health changes, etc. don't want to be seen as a "hero" or "inspirational story"? It's can be a tricky balance. #HITsm |
| Amanda G @LAlupusLady A4 @powerofpain is constantly developing new projects that inspire me to thrive despite #chronicpain ~ can't wait for #iPainSummit19 in November. #HITsm |
| Lisa Danielpour @LisaDani @askjoyrios Hi Joy! Happy Friday! Great to read your insights and experience #HITsm |
| Amanda G @LAlupusLady RT @LisaDani: @LAlupusLady @LupusOrg Awesome! It's interesting that coincidentally purple is the color for #IBD #Crohns #UC awareness, too. For autism it's the colorful puzzle pieces ribbon. It think these visual keys help reinforce the message #HITsm |
| Barby Ingle Official @BarbyIngle RT @LAlupusLady: A4 @powerofpain is constantly developing new projects that inspire me to thrive despite #chronicpain ~ can't wait for #iPainSummit19 in November. #HITsm |
| Amanda G @LAlupusLady RT @askjoyrios: T3: T3: Being close to someone who's contracted #AFM, I've seen awareness for that disease raised through FB Groups and lots of sharing on social media. #HITsm |
| VNAcare @VNA_SoCal RT @askjoyrios: #AFM info: #AFM info: https://t.co/zyXOUeSwko #HITsm |
| Amanda G @LAlupusLady RT @BarbyIngle: T4 Organizations & patient communities that best understand the impact social media has on awareness include: T4 Organizations & patient communities that best understand the impact social media has on awareness include: @powerofpain @myIVcom @power4patients @forgrace @iPainFoundation @healthevoices @wegohealth @OperationRRR @CalRare @EFSouthIL @WomenEpilepsy @epilepsyadvice #HITsm |
| International Pain Foundation® @iPainOfficial RT @LAlupusLady: A4 @powerofpain is constantly developing new projects that inspire me to thrive despite #chronicpain ~ can't wait for #iPainSummit19 in November. #HITsm |
| Amanda G @LAlupusLady RT @LisaDani: @VNA_SoCal Educational events like seminars are so helpful. @milestonesorg holds Milestones National Conference bringing together 1200 families, individuals w #autism & professionals to learn, connect and hear from national experts. People w #ASD speak at the conference, so powerful #HITsm |
| International Pain Foundation® @iPainOfficial @LAlupusLady We are looking forward to having you at #iPainSummit2019 in #NERVEmber as well! #HITsm |
| Healthcare Scene @HealthcareScene T5: Which are the best social media platforms for patient communities to raise awareness? Why? @LALupusLady #HITsm https://t.co/kqE7eprLgF |
| Barby Ingle Official @BarbyIngle T5 For me the best SoMe platforms for PT communities to raise awareness are Twitter, Facebook and Instagram. Twitter and Instagram are short sweet and lead you to resources. Facebook is more conversational and you can give greater details when you need to go in-depth. #HITsm |
| Amanda G @LAlupusLady Personally, like the term #LupusWarrior but understand the need to be seen as a person first. I am not a "utensil" and do not connect with the term some use. #HITsm |
| Amanda G @LAlupusLady RT @HealthcareScene: T5: T5: Which are the best social media platforms for patient communities to raise awareness? Why? @LALupusLady #HITsm https://t.co/kqE7eprLgF |
| Amanda G @LAlupusLady A5 There are so many platforms and I believe that each one has benefits and if used correctly can impact patient engagement. Facebook Groups were the first way I connected to other #lupus patients. #HITsm |
 | Robin Roberts @RRobertseHealth @LisaDani I think it's possible to be a story teller but labeling someone a #hero because of a Dx is odd. I think it creates an "us" "them" mentality that is driven by a condition and a perosn is more than a dx. #hitsm |
| Amanda G @LAlupusLady A5 Now, primarily I share on Twitter and Instagram (as @MsAmandaGreene where I frequently post cat pictures.) Patient communities need to think and plan social media outreach that works best for them. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste T3: Another example where #patientadvocacy organization @American_Heart is using the power of #socialmedia to advance goals of reducing the #hypertension epidemic via global #CheckIt ✅ #SoMe campaign #WorldHypertensionDay #HITsm @evankirstel @eViRaHealth @glfceo @GraceCordovano |
| 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @IrmaRaste: T3: T3: Another example where #patientadvocacy organization @American_Heart is using the power of #socialmedia to advance goals of reducing the #hypertension epidemic via global #CheckIt ✅ #SoMe campaign #WorldHypertensionDay #HITsm @evankirstel @eViRaHealth @glfceo @GraceCordovano |
 | designpro5 @designpro51 https://t.co/GcunROft1G |
| Lisa Danielpour @LisaDani @askjoyrios You make good point, Joy. Think it's important to be sensitive to each person's situation & different conditions. The #autism community is diff from #CrohnsDisease for example,2 of the worlds I live in. And of course each person w autism or whatever is their own person/1 #HITsm |
| Amanda G @LAlupusLady @HealthcareScene A5 To me, the idea of patient communities using social media is to help patients feel connected, supported and informed. Using humor and facts keeps it interesting. #HITsm |
 | B2B HealthTech Experts @eViRaHealth RT @IrmaRaste: T3: T3: Another example where #patientadvocacy organization @American_Heart is using the power of #socialmedia to advance goals of reducing the #hypertension epidemic via global #CheckIt ✅ #SoMe campaign #WorldHypertensionDay #HITsm @evankirstel @eViRaHealth @glfceo @GraceCordovano |
| B2B HealthTech Experts @eViRaHealth RT @IrmaRaste: T3: Campaign example from #WorldHypertensionDay today: T3: Campaign example from #WorldHypertensionDay today: focus on the numbers. #hitsm |
| B2B HealthTech Experts @eViRaHealth RT @IrmaRaste: Today is also a #WorldHypertensionDay! #Patient resources👇 #HITsm |
| B2B HealthTech Experts @eViRaHealth RT @VNA_SoCal: Yup! Telling a story is a wonderful motivator for people to interact with and discuss. Sometimes it motivates them to share their own stories too. Storytelling is the gift that keeps on giving. #HITsm |
| Robin Roberts @RRobertseHealth A5 there are so many platforms now and I think it depends on what you want o accomplish advocacy and awareness take many forms - I love @savvy_coop for patient driven/centered action and work, FB groups bring patients together and SM is obviously huge #hitsm |
| B2B HealthTech Experts @eViRaHealth RT @LAlupusLady: A3 The way @powerofpain engages online with webinars and patient videos sustains awareness within and beyond their #chronicpain community. A #lupus patient sharing is a fabulous tool, watch and enjoy... https://t.co/w2NDvFyEX6 via @YouTube #HITsm |
| B2B HealthTech Experts @eViRaHealth RT @LisaDani: @techguy @IrmaRaste I admire people who are moderating such great SM communities. The patient communities in fb groups for example make such a difference for patients and families but for moderators I see the challenge of watching for problems ie giving medical advice, not evidence based #HITsm |
| B2B HealthTech Experts @eViRaHealth RT @BarbyIngle: T3 cont: T3 cont: Patient communities can also use social media to boost increase brand awareness, use visual content to develop a unique voice and personality, Share great news, celebrations, and awareness campaigns. #HITsm |
| B2B HealthTech Experts @eViRaHealth RT @BarbyIngle: T3. To raise awareness n a PT community you encourage your fans & followers 2 share ur posts, create contests, use high quality content, respond w positive engagement, ask questions, show examples, use video & photo content when available, offer free demos and webinars #HITsm |
| B2B HealthTech Experts @eViRaHealth RT @IrmaRaste: T2: T2: It’s important to reach those that are not necessarily on #socialmedia/engaged & empowered. Although there are platforms that are perhaps more accessible, like #Facebook, which I have been ignoring in favor of #Twitter & #LinkedIn #HITsm |
| B2B HealthTech Experts @eViRaHealth RT @IrmaRaste: T2: T2: Stories with heart, joy and honesty is key to being heard, and compelling people to action. #storytelling #HITsm |
| B2B HealthTech Experts @eViRaHealth RT @BarbyIngle: @HealthcareScene @LAlupusLady I am @BarbyIngle Pain Patient, author, wife, friend, CHEERLEADER... come to the chat from AZ (fresh from a trip to Mexico City), My fav thing about purple is it reps many pain conditions I care about Lupus, Epilepsy, ALZ, & more! I put on purple today for Lupus Awareness! #HITsm https://t.co/bun1qI58RQ |
| B2B HealthTech Experts @eViRaHealth RT @LAlupusLady: I am Amanda. Living with lupus and chronic pain isn't fun but awareness is. My favorite purple item has got to be... the cape! #HITsm https://t.co/QC1UNEeisp |
| B2B HealthTech Experts @eViRaHealth RT @LAlupusLady: A1 Patient communities using social media to raise awareness can inform and engage the patients and the public through storytelling and facts. A great infographic such as this one via @LupusResearch can create a lasting impact. #HITsm during #LupusAwarenessMonth https://t.co/zdmAqtF0VX |
| B2B HealthTech Experts @eViRaHealth RT @BarbyIngle: @HealthcareScene @LAlupusLady T1 PT Communities can best use social media 2 raise awareness by learning in’s & out’s of SoMe platforms 2 improve health outcomes, develop support network, increase personal awareness of news & discoveries around interest, motivate PTs & provide health info 2 community #HITsm |
| Amanda G @LAlupusLady Can't wait to have IRL interactions, because often social media is not enough. #HITsm |
| B2B HealthTech Experts @eViRaHealth RT @IrmaRaste: 👋 Irma from #Boston. #ePatient, #cancer #survivor, multiple #chronic conditions, #PatientAdvocate, #SocialMedia #influencer #HealthTech #B2B #digital #marketing #SocialMediaMarketing, member of #pinksocks tribe, supporter of #HCLDR #HITsm, mother, grandmother, #TEDx organizer. https://t.co/0WsT3i7x9j |
| Lisa Danielpour @LisaDani @askjoyrios We don't use word hero, just an image in my heart for some of my loved ones I've seen fight such difficult situations, ie my younger son's battle w severe #Crohns #HITsm |
| B2B HealthTech Experts @eViRaHealth RT @IrmaRaste: I love #purple because it’s a high vibration color, and color of the Crown Chakra. #hitsm |
| Amanda G @LAlupusLady RT @BarbyIngle: T5 For me the best SoMe platforms for PT communities to raise awareness are Twitter, Facebook and Instagram. Twitter and Instagram are short sweet and lead you to resources. Facebook is more conversational and you can give greater details when you need to go in-depth. #HITsm |
| B2B HealthTech Experts @eViRaHealth Here is another #purple for #HITsm, although not a great one this time. |
| B2B HealthTech Experts @eViRaHealth RT @IrmaRaste: Great topic! Looking forward to all the insights #HITsm @evankirstel @eViRaHealth |
| B2B HealthTech Experts @eViRaHealth RT @LAlupusLady: Look what @BTWFoundation shared before I host the #HITsm chat about the power of collaboration and community. in 14 minutes... |
| B2B HealthTech Experts @eViRaHealth RT @LAlupusLady: Are you a part of a patient community that shares online? Please join #HITsm today. https://t.co/QcBePe5Rgo |
| B2B HealthTech Experts @eViRaHealth RT @LAlupusLady: Wearing purple to support #LupusAwareness before hosting this morning’s #HITsm if you please #PutOnPurple today... https://t.co/iGDFqe6dJx |
| B2B HealthTech Experts @eViRaHealth RT @NiravJModi: #WeAreCarium and we work relentlessly and tirelessly together with our partners to transform healthcare. ✔️ Mission ✔️ Vision ✔️ Values ✔️ Culture #HealthIT #innovation #Engage4Health #hcldr #HItsm #PinkSocks #Healthcare #teamwork #BeTheChange |
| B2B HealthTech Experts @eViRaHealth RT @LAlupusLady: Getting ready to host/share "Awareness and Social Media Fundamentals for Patient Communities" during #HITsm community conversation. Friday Noon Eastern/9AM Pacific https://t.co/QcBePe5Rgo |
| Lisa Danielpour @LisaDani @RRobertseHealth Interesting point, Robin. I wasn't thinking of it as labeling them a hero bc of their diagnosis which I agree would be odd. It's seeing what people work through and deal with such heart and strength that inspires me personally. So imp to be sensitive to each situation #HITsm |
| Healthcare Scene @HealthcareScene Bonus: How can you use the insights gained in today’s #HITsm chat to engage with patient communities? @LAlupusLady #HITsm https://t.co/E3eT6HcSNZ |
 | Alice Lee @alee7095 RT @BarbyIngle: T3. To raise awareness n a PT community you encourage your fans & followers 2 share ur posts, create contests, use high quality content, respond w positive engagement, ask questions, show examples, use video & photo content when available, offer free demos and webinars #HITsm |
| Amanda G @LAlupusLady RT @HealthcareScene: Bonus: Bonus: How can you use the insights gained in today’s #HITsm chat to engage with patient communities? @LAlupusLady #HITsm https://t.co/E3eT6HcSNZ |
 | ًSupra ؚ @hitconsultant JPMorgan Chase to Acquire Healthcare Payments Solution InstaMed https://t.co/BWLTHKDerR #revenuecycle #hitsm #healthIT |
| Alice Lee @alee7095 RT @BarbyIngle: prepping for #hitsm chat!!!! in 10 mins... I am dancing to Hope Is True by iPain ... Join me https://t.co/GnNdSIwydt #ChronicPainAnthem #MusicMovesAwareness |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: A2 continued... I believe that healthcare awareness is important but that doesn’t mean it can’t be fun and engaging. Patient communities should be telling stories with heart, humor and honesty. #HITsm https://t.co/tXTWgXWzLP |
| Barby Ingle Official @BarbyIngle Bonus: Using different messages across SoMe is important. Keep similar branding on each, but make your message goals match that platform. Post a unique message along with the info you are sharing, share great content, use content that delivers value or solve a problem #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @techguy: @LAlupusLady Communities are a mix of interactions. If it's all topical, then it's not a great community. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: A3 while @LupusOrg raises #LupusAwareness during May (today!) by encouraging people to #PutOnPurple #HITsm https://t.co/LU8B1qTBTb |
| International Pain Foundation® @iPainOfficial RT @LAlupusLady: Can't wait to have IRL interactions, because often social media is not enough. #HITsm |
| Alice Lee @alee7095 RT @BarbyIngle: Bonus: Bonus: Using different messages across SoMe is important. Keep similar branding on each, but make your message goals match that platform. Post a unique message along with the info you are sharing, share great content, use content that delivers value or solve a problem #HITsm |
| Alice Lee @alee7095 RT @LAlupusLady: Love this @KellyClarkson Anthem Stronger (What Doesn't Kill You) https://t.co/HnYYUrGS6l via @YouTube Dancing to prep for #HITsm as @BarbyIngle knows #MusicMovesAwareness |
| Alice Lee @alee7095 RT @LAlupusLady: Look what @BTWFoundation shared before I host the #HITsm chat about the power of collaboration and community. in 14 minutes... |
| Amanda G @LAlupusLady RT @BarbyIngle: Bonus: Bonus: Using different messages across SoMe is important. Keep similar branding on each, but make your message goals match that platform. Post a unique message along with the info you are sharing, share great content, use content that delivers value or solve a problem #HITsm |
| Lisa Danielpour @LisaDani @LAlupusLady Agree, so important to be a person first. It's up to each person how they want to identify and what is meaningful to them. My son likes making up or finding hashtags like #StrongerthanIBD #FightingSpirit #CrohnsWarrior #HITsm |
| Barby Ingle Official @BarbyIngle CT... The better the content and sharing of others great content the more we can engage with our patient communities Thanks @HealthcareScene #HITsm & @LAlupusLady for a great chat today #LupusAwarenessMonth |
| John Lynn @techguy Sorry I fell off I'm at an event I'm going to have to check the transcript #hitsm |
| Amanda G @LAlupusLady BONUS Any member of #HITsm can share their support of an organization by using #CKShoutOutTo thanks to @BTWFoundation who understand the power of kindness. |
 | Shelby Kutty, MD, PhD, MHCM @ShelbyKuttyMD RT @EMRAnswers: |
| Alice Lee @alee7095 RT @BarbyIngle: CT... The better the content and sharing of others great content the more we can engage with our patient communities Thanks @HealthcareScene #HITsm & @LAlupusLady for a great chat today #LupusAwarenessMonth |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste ⚡️The BEST is when #SocialMedia is combined with connections IRL! Ability to virtually meet so many ppl on #SoMe & then see them at conferences (and vice versa) has been transformative. #HITsm Shoutout to other communities: #pinksocks #HCLDR #HITMC ✅ @evankirstel @eViRaHealth |
| Healthcare Scene @HealthcareScene Join us for next week's #HITsm chat hosted by Sean Erreger, LCSW (@StuckonSW) |
| Healthcare Scene @HealthcareScene Let's give a massive thank you to @LALupusLady for hosting this week's #HITsm chat and to each of you who shared your ideas and perspectives. https://t.co/jeZenQaeoB |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @VNA_SoCal: A1: A1: Love what @LAlupusLady said about storytelling and educating. We are working to implement those practices into our company fabric to help more people in our communities. Infographics and videos are hot right now! #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: A5 Now, primarily I share on Twitter and Instagram (as @MsAmandaGreene where I frequently post cat pictures.) Patient communities need to think and plan social media outreach that works best for them. #HITsm |
| Amanda G @LAlupusLady Thank you so much to @HealthcareScene and @techguy for allowing me to host and share during today's #HITsm https://t.co/C2hyER48bN |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @RRobertseHealth: A5 there are so many platforms now and I think it depends on what you want o accomplish advocacy and awareness take many forms - I love @savvy_coop for patient driven/centered action and work, FB groups bring patients together and SM is obviously huge #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: A5 There are so many platforms and I believe that each one has benefits and if used correctly can impact patient engagement. Facebook Groups were the first way I connected to other #lupus patients. #HITsm |
| Amanda G @LAlupusLady RT @HealthcareScene: Let's give a massive thank you to @LALupusLady for hosting this week's #HITsm chat and to each of you who shared your ideas and perspectives. https://t.co/jeZenQaeoB |
| Amanda G @LAlupusLady RT @IrmaRaste: ⚡️The BEST is when #SocialMedia is combined with connections IRL! Ability to virtually meet so many ppl on #SoMe & then see them at conferences (and vice versa) has been transformative. #HITsm Shoutout to other communities: #pinksocks #HCLDR #HITMC ✅ @evankirstel @eViRaHealth |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @askjoyrios: T3: T3: Being close to someone who's contracted #AFM, I've seen awareness for that disease raised through FB Groups and lots of sharing on social media. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @askjoyrios: And lots of personal stories about others contracting it, the advocacy work, and more here: And lots of personal stories about others contracting it, the advocacy work, and more here: https://t.co/nbqhZ571L4 #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: A4 Sharing my #CKShoutOutTo @BTWFoundation using social media, research and developing programs that empower youth with mental health resources #teenMHFA and @channelkindness #HITsm |
| Amanda G @LAlupusLady RT @BarbyIngle: CT... The better the content and sharing of others great content the more we can engage with our patient communities Thanks @HealthcareScene #HITsm & @LAlupusLady for a great chat today #LupusAwarenessMonth |
| John Lynn @techguy Thanks for hosting. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LisaDani: @VNA_SoCal Educational events like seminars are so helpful. @milestonesorg holds Milestones National Conference bringing together 1200 families, individuals w #autism & professionals to learn, connect and hear from national experts. People w #ASD speak at the conference, so powerful #HITsm |
| Lisa Danielpour @LisaDani @RRobertseHealth My perspective isn't to idolize a person at all and it's not for having a diagnosis. It's that I respect and admire how a number of people I have met handle enormously difficult journeys. #HITsm |
| Amanda G @LAlupusLady RT @techguy: Thanks for hosting. #hitsm |
| Barby Ingle Official @BarbyIngle Top Influencers of #HITsm 5/17/2019 chat 👉 @LAlupusLady @HealthcareScene @BarbyIngle @IrmaRaste @techguy @VNA_SoCal @LisaDani @eViRaHealth @powerofpain @ShereesePubHlth https://t.co/RhW1evVEOz via @symplur |
| Alice Lee @alee7095 RT @BarbyIngle: Top Influencers of #HITsm 5/17/2019 chat 👉 @LAlupusLady @HealthcareScene @BarbyIngle @IrmaRaste @techguy @VNA_SoCal @LisaDani @eViRaHealth @powerofpain @ShereesePubHlth https://t.co/RhW1evVEOz via @symplur |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BarbyIngle: Top Influencers of #HITsm 5/17/2019 chat 👉 @LAlupusLady @HealthcareScene @BarbyIngle @IrmaRaste @techguy @VNA_SoCal @LisaDani @eViRaHealth @powerofpain @ShereesePubHlth https://t.co/RhW1evVEOz via @symplur |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @IrmaRaste: Including relevant people, orgs & communities in this thread: Including relevant people, orgs & communities in this thread: please share 🙏 #pinksocks #HCLDR #HITsm #MedTwitter @hmkyale @alisadoc1 @mahesh_maidsh @AndreasGevaert @gina_lundberg @GoRedForWomen @WomenHeartOrg @WHA @ACCinTouch @emorywomenheart @teaminspire @GuptaRMD @SDRoyMD |
| Amanda G @LAlupusLady Post #HITsm glow in progress... Giving myself a hug. https://t.co/kYppWTcqoj |
#HITsm content from Twitter.