#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Janet Freeman-Daily @JFreemanDaily Welcome to #LCSM Chat! Tonight we will be discussing “Ways to support #lungcancer patients and caregivers.” More info on our blog at https://t.co/HOjVOZBdPg |
 | Faces of Lung Cancer @LungCancerFaces RT @JMPhoto5: Today I made it to 5 years #lungcancer free! Please #stopthestigma and encourage anyone with lungs to get checked #LCSM #433aday |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “Ways to support #lungcancer patients and caregivers.” More info on our blog at https://t.co/HOjVOZBdPg |
 | Pramesh CS @cspramesh RT @ShipleyDeb: This illustrates the horrific inequality of #lungcancer research funding!! https://t.co/MxDdfD7qTX |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “Ways to support #lungcancer patients and caregivers.” More info on our blog at https://t.co/HOjVOZBdPg |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “Ways to support #lungcancer patients and caregivers.” More info on our blog at https://t.co/HOjVOZBdPg |
 | Carlos @carlos_rdb97 My 57-year old Dad was diagnosed with Stage IV NSCLC last December 18th, 2019 #LCSM |
| Janet Freeman-Daily @JFreemanDaily We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM |
| Janet Freeman-Daily @JFreemanDaily @carlos_rdb97 Welcome to #LCSM Chat, Carlos! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here. #LCSM |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #LCSM |
| Pramesh CS @cspramesh RT @plh4lisa: #LungCancer, the most deadly, killing more than breast, colorectal & prostate cancers COMBINED. A misunderstood disease, receiving the least amount of gov't funds for research. Change this. Give me a chance to live longer. @SenatorBennet @SenCoryGardner @RepDLamborn #lcsm |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD Hi Tim! Glad you could drop in. #LCSM |
| Faces of Lung Cancer @LungCancerFaces Deana in windy Los Angeles here. I’ll be tweeting from the @lcsmchat account tonight. #lcsm |
 | Charu Aggarwal, MD, MPH, FASCO @CharuAggarwalMD @JFreemanDaily Medical Oncologist here from Philadelphia, PA. Happy new year everyone! #LCSM |
 | LungCancer.net @LungCancer_HU Margot here! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #LCSM |
| Janet Freeman-Daily @JFreemanDaily If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb |
 | Tiffini Joseph @Smiles4Nana @JFreemanDaily Tiffini from south Florida. Happy New Year #lcsm |
 | Mᴀɴᴜ Sʜᴀʀᴍᴀ @themanusharma RT @ShipleyDeb: This illustrates the horrific inequality of #lungcancer research funding!! https://t.co/MxDdfD7qTX |
 | Henning Willers, MD @HenningWillers Henning Willers here, clinician scientist treating patients with #lungcancer at MGH. Good evening everybody #lcsm |
| #LCSM Chat @lcsmchat @CharuAggarwalMD @JFreemanDaily Welcome! #lcsm |
 | Lung Cancer Sux @LungCancerSux Glorianne in CT. Hubby diagnosed in 2010. Looking forward to the chat #LCSM |
| #LCSM Chat @lcsmchat @LungCancer_HU Hey Margot! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @CharuAggarwalMD Welcome, Charu! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb |
| #LCSM Chat @lcsmchat @Smiles4Nana @JFreemanDaily Yay! Great to “see” you. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @Smiles4Nana Hi Tiffini! Tell us about your #lungcancer connection? #LCSM |
| #LCSM Chat @lcsmchat @HenningWillers Welcome! #lcsm |
| Tiffini Joseph @Smiles4Nana @lcsmchat @JFreemanDaily Same!! So glad I’m not working tonight #lcsm |
| #LCSM Chat @lcsmchat @LungCancerSux Hi Glorianne! #lcsm |
| #LCSM Chat @lcsmchat @RedGia @JFreemanDaily Hey you! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @LungCancerFaces @lcsmchat Hey there, Deana--taking a break from grandmommying? #LCSM |
| Janet Freeman-Daily @JFreemanDaily @LungCancer_HU Welcome Margot! #LCSM |
 | Benjamin King, MD @BenjaminKingMD Good Evening. Ben King, Radiation Oncologist joining from @CedarsSinai community site in Los Angeles. #lcsm |
| #LCSM Chat @lcsmchat @JFreemanDaily @LungCancerFaces He’s a colicky little guy, but luckily his mama’s got him now! #lcsm |
 | Laura Greco @lgreco_ny Laura here from chilly upstate NY #lcsm |
| Tiffini Joseph @Smiles4Nana My mom was dc w/stage4 LC in 2008, she passed away in 2010. I’ve been advocating ever since #LCSM |
 | kristen kimball @KimballKristen @JFreemanDaily Kris, currently in Uber en route home from grief group. Trying not to get carsick here in Boston. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @HenningWillers Good evening! Glad you could join us. #LCSM |
| #LCSM Chat @lcsmchat @BenjaminKingMD1 @CedarsSinai Welcome! Where is your practice located? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @RedGia Hey Gia! #LCSM |
 | NCI Cancer Stats @NCICancerStats In 2015, most #LungCancer cases were diagnosed in the distant stage, which has a lower 5-year relative survival rate. Explore more stats on this cancer here: https://t.co/BVqvN4e1pm #LCSM @lcsmchat https://t.co/PLXBby5X3G |
| Janet Freeman-Daily @JFreemanDaily @BenjaminKingMD1 @CedarsSinai Good to see you here! #LCSM |
| #LCSM Chat @lcsmchat @lgreco_ny Hey Laura! How’s it going? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @lgreco_ny Hey, glad you're here! #LCSM |
| Tiffini Joseph @Smiles4Nana @lgreco_ny Glad to see you ❤️ #LCSM |
| #LCSM Chat @lcsmchat @KimballKristen @JFreemanDaily Thanks for joining, Kris. I know the holidays have not been easy for you. xo #lcsm |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them. |
| Laura Greco @lgreco_ny @lcsmchat Just peachy! :) #lcsm |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience |
| Janet Freeman-Daily @JFreemanDaily Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM |
| #LCSM Chat @lcsmchat @lgreco_ny Lol, right... #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them. |
| Janet Freeman-Daily @JFreemanDaily I will announce FOUR topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM |
 | Dr Janet R. Wojcik 💪🌻 🐈🪴🚲 @JanetRWojcikPhD RT @NCICancerStats: In 2015, most #LungCancer cases were diagnosed in the distant stage, which has a lower 5-year relative survival rate. Explore more stats on this cancer here: https://t.co/BVqvN4e1pm #LCSM @lcsmchat https://t.co/PLXBby5X3G |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Note: Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM |
| Janet Freeman-Daily @JFreemanDaily Glad to see familiar Twitter handles as well as new participants tonight! #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1. What are the biggest challenges faced by lung cancer patients, caregivers and families? Which factors most influence these challenges--cancer staging, family status, finances, access to lung cancer specialists, ... ? #LCSM |
 | Sally Herschorn, MD @SHerschorn RT @findlungcancer: Let’s all tell @TODAYshow about #lungcancer screening @BrendonStilesMD @DrewMoghanaki @EJFloresMD @hodakotb @SavannahGuthrie @JFreemanDaily @LungCancerFaces @lung_ca_screen @IASLC @LungAssociation @HaroldWimmer @AmericanCancer #lcsm @DrIanWeissman @grebeccahaines @RadiologyACR |
| Janet Freeman-Daily @JFreemanDaily @lgreco_ny @lcsmchat Peaches have pits too ... #LCSM |
 | Ishwaria Subbiah, MD MS FASCO @IshwariaMD @JFreemanDaily Hi #lcsm! #SupportiveCare #PalliativeCare physician here from Houston. Following along and will chime in as the kids allow. |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb |
| Charu Aggarwal, MD, MPH, FASCO @CharuAggarwalMD @JFreemanDaily T1. Access to specialty care, molecular testing, and clinical trials. #LCSM |
| Tiffini Joseph @Smiles4Nana T1 it was many years ago, but we felt very isolated. Mom felt guilty, like her cancer was her fault #LCSM |
| #LCSM Chat @lcsmchat @BenjaminKingMD1 @CedarsSinai @CSCancerCare I’m sitting right here in Encino, neighbor! -Deana #lcsm |
| Janet Freeman-Daily @JFreemanDaily @IshwariaMD Welcome! Thank the kids for sharing you. ;) #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T1. What are the biggest challenges faced by lung cancer patients, caregivers and families? Which factors most influence these challenges--cancer staging, family status, finances, access to lung cancer specialists, ... ? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I will announce FOUR topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Glad to see familiar Twitter handles as well as new participants tonight! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1. What are the biggest challenges faced by lung cancer patients, caregivers and families? Which factors most influence these challenges--cancer staging, family status, finances, access to lung cancer specialists, ... ? #LCSM |
| #LCSM Chat @lcsmchat RT @CharuAggarwalMD: @JFreemanDaily T1. Access to specialty care, molecular testing, and clinical trials. #LCSM |
| Tiffini Joseph @Smiles4Nana T1 I think there is a big problem w/access to care. So many still think any oncologist can help them, not realizing they should see 1 specializing in LC #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #NoStigma #LCSM |
| Laura Greco @lgreco_ny @JFreemanDaily T1 Based on my recent experiences, biggest challenge is lack of great durable treatment options. Really hard to maintain optimism when neurosurgeon tells you that you'll probably be back #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @Smiles4Nana: T1 I think there is a big problem w/access to care. So many still think any oncologist can help them, not realizing they should see 1 specializing in LC #LCSM |
| Tiffini Joseph @Smiles4Nana T1 I try to explain that you wouldn’t see an endocrinologist for a heart problem. Cancer is the same #LCSM |
| #LCSM Chat @lcsmchat RT @Smiles4Nana: T1 it was many years ago, but we felt very isolated. Mom felt guilty, like her cancer was her fault #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lgreco_ny: @JFreemanDaily T1 Based on my recent experiences, biggest challenge is lack of great durable treatment options. Really hard to maintain optimism when neurosurgeon tells you that you'll probably be back #lcsm |
| #LCSM Chat @lcsmchat RT @Smiles4Nana: T1 I think there is a big problem w/access to care. So many still think any oncologist can help them, not realizing they should see 1 specializing in LC #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @JFreemanDaily T1 Based on my recent experiences, biggest challenge is lack of great durable treatment options. Really hard to maintain optimism when neurosurgeon tells you that you'll probably be back #lcsm |
| #LCSM Chat @lcsmchat RT @Smiles4Nana: T1 I try to explain that you wouldn’t see an endocrinologist for a heart problem. Cancer is the same #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1. For newly diagnosed patients (or those going thru diagnostic process) and family, overcoming the shock and trying to absorb the firehose of new terms, concepts, instructions, tests, etc. is a huge challenge. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1. For newly diagnosed patients (or those going thru diagnostic process) and family, overcoming the shock and trying to absorb the firehose of new terms, concepts, instructions, tests, etc. is a huge challenge. #LCSM |
| Tiffini Joseph @Smiles4Nana RT @JFreemanDaily: T1. For newly diagnosed patients (or those going thru diagnostic process) and family, overcoming the shock and trying to absorb the firehose of new terms, concepts, instructions, tests, etc. is a huge challenge. #LCSM |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @JFreemanDaily T1: Oof, just about every dimension of life is impacted w this diagnosis, right? Some common challenges that pts share w me - maintaining some semblance of “normalcy” in their and their families’ lives as they go through treatment. Minimizing disruption of the routines. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T1. For newly diagnosed patients (or those going thru diagnostic process) and family, overcoming the shock and trying to absorb the firehose of new terms, concepts, instructions, tests, etc. is a huge challenge. #LCSM |
 | Deb Smith 🌻🟧 @debsmithbeach Deb here, from chilly NH. #LCSM |
| Charu Aggarwal, MD, MPH, FASCO @CharuAggarwalMD @Smiles4Nana Sorry to hear that. Unfortunately still stigma associated with the diagnosis. We need to do better as a society, I do think things are changing #LCSM |
| Carlos @carlos_rdb97 T1 My Dad is a new patient and the one thing I witnessed was how he started deteriorating quicker after his diagnosis. It's been 3 weeks and we are just about to meet his Oncologist on Monday. Mom, the palliative care team and I have been trying our best to maintain (1) #lcsm |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @JFreemanDaily T1: @JFreemanDaily T1: Oof, just about every dimension of life is impacted w this diagnosis, right? Some common challenges that pts share w me - maintaining some semblance of “normalcy” in their and their families’ lives as they go through treatment. Minimizing disruption of the routines. #lcsm |
| Carlos @carlos_rdb97 T1 (cont) his quality of life until the appointment. #lcsm |
| #LCSM Chat @lcsmchat RT @CharuAggarwalMD: @Smiles4Nana Sorry to hear that. Unfortunately still stigma associated with the diagnosis. We need to do better as a society, I do think things are changing #LCSM |
| Henning Willers, MD @HenningWillers @Smiles4Nana T1 Often difficult to get into large cities to see specialists. What can the specialists do to improve access? #lcsm |
| #LCSM Chat @lcsmchat RT @carlos_rdb97: T1 My Dad is a new patient and the one thing I witnessed was how he started deteriorating quicker after his diagnosis. It's been 3 weeks and we are just about to meet his Oncologist on Monday. Mom, the palliative care team and I have been trying our best to maintain (1) #lcsm |
| Tiffini Joseph @Smiles4Nana @CharuAggarwalMD I agree, baby steps #LCSM |
| Carlos @carlos_rdb97 T1 Dad has bone mets & active hemoptysis and he is currently immobile with no appetite. One of my worries is getting declined treatment. #lcsm |
| #LCSM Chat @lcsmchat RT @HenningWillers: @Smiles4Nana T1 Often difficult to get into large cities to see specialists. What can the specialists do to improve access? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @RedGia T1. Financial toxicity isn't always one's first thought when dealing with #lungcancer, but it pops up pretty shortly thereafter. Without insurance, my first year of surviving lung cancer would have cost $500K+. I was lucky my insurance covered it. #lcsm |
| Tiffini Joseph @Smiles4Nana @HenningWillers Would telehealth be an option for some? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @RedGia T1. Financial toxicity isn't always one's first thought when dealing with #lungcancer, but it pops up pretty shortly thereafter. Without insurance, my first year of surviving lung cancer would have cost $500K+. I was lucky my insurance covered it. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @RedGia T1. Financial toxicity isn't always one's first thought when dealing with #lungcancer, but it pops up pretty shortly thereafter. Without insurance, my first year of surviving lung cancer would have cost $500K+. I was lucky my insurance covered it. #lcsm |
 | Gia Sonata @RedGia RT @JFreemanDaily: @RedGia T1. Financial toxicity isn't always one's first thought when dealing with #lungcancer, but it pops up pretty shortly thereafter. Without insurance, my first year of surviving lung cancer would have cost $500K+. I was lucky my insurance covered it. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @IshwariaMD T1. In the first months of diagnosis and treatment (especially curative chemotherapy-radiation), the family's entire calendar revolves around medical appointments and coping with side effects. #LCSM |
| Benjamin King, MD @BenjaminKingMD T1. Challenges for #lungcancer (and other cancers), =navigating treatment decisions w/ novel agents for which phase 3 randomized data is just not available. Producing recommendations & explaining these choices to pts/families for #SharedDecisionMaking is challenging #LCSM |
| Janet Freeman-Daily @JFreemanDaily @debsmithbeach Welcome! #LCSm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @IshwariaMD T1. In the first months of diagnosis and treatment (especially curative chemotherapy-radiation), the family's entire calendar revolves around medical appointments and coping with side effects. #LCSM |
| Tiffini Joseph @Smiles4Nana @carlos_rdb97 I’m sorry you all are going through this. My mom has bone Mets too, she said the pain was much better after radiation #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @IshwariaMD T1. In the first months of diagnosis and treatment (especially curative chemotherapy-radiation), the family's entire calendar revolves around medical appointments and coping with side effects. #LCSM |
| #LCSM Chat @lcsmchat RT @BenjaminKingMD1: T1. Challenges for #lungcancer (and other cancers), =navigating treatment decisions w/ novel agents for which phase 3 randomized data is just not available. Producing recommendations & explaining these choices to pts/families for #SharedDecisionMaking is challenging #LCSM |
| Laura Greco @lgreco_ny @HenningWillers @Smiles4Nana T1 specialists can remove financial toxicity. Is it possible to have all appointments in one day, avoiding hotel, can hospital make available lower cost alternatives. I have literally spent thousands of dollars in Boston @MGHCancerCenter just since September. #lcsm |
| #LCSM Chat @lcsmchat RT @Smiles4Nana: @carlos_rdb97 I’m sorry you all are going through this. My mom has bone Mets too, she said the pain was much better after radiation #LCSM |
| Janet Freeman-Daily @JFreemanDaily @carlos_rdb97 Alas, when lung function gets impacted, things can go downhill fast. Pneumonia almost did me in before #lungcancer treatment even started. #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @HenningWillers @Smiles4Nana T1 specialists can remove financial toxicity. Is it possible to have all appointments in one day, avoiding hotel, can hospital make available lower cost alternatives. I have literally spent thousands of dollars in Boston @MGHCancerCenter just since September. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @carlos_rdb97 Alas, when lung function gets impacted, things can go downhill fast. Pneumonia almost did me in before #lungcancer treatment even started. #LCSM |
| Tiffini Joseph @Smiles4Nana RT @lgreco_ny: @HenningWillers @Smiles4Nana T1 specialists can remove financial toxicity. Is it possible to have all appointments in one day, avoiding hotel, can hospital make available lower cost alternatives. I have literally spent thousands of dollars in Boston @MGHCancerCenter just since September. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @carlos_rdb97 Alas, when lung function gets impacted, things can go downhill fast. Pneumonia almost did me in before #lungcancer treatment even started. #LCSM |
| Deb Smith 🌻🟧 @debsmithbeach @RedGia @JFreemanDaily T-1. I agree. It’s been the same for me. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD We need to better use telemedicine. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T2. What support resources are available ONLINE for lung cancer patients, caregivers, and families? #LCSM |
| Laura Greco @lgreco_ny @HenningWillers @Smiles4Nana T1 Coordinate better specialists' clinic days. Related specialists often have different clinic days spreading out treatment time and increasing time and expense for patient and family. #lcsm |
| Henning Willers, MD @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter T1 So agree, all same day whenever possible. We do suffer with our patients. Traffic and parking so hard in the city. Parking for multiple treatments should be FREE! #lcsm |
| Carlos @carlos_rdb97 @Smiles4Nana Thank you Tiffini. Dad received palliative radiation 2 weeks ago and it seems to have helped with his hip pain. Our struggle right now is Dad seems to really taking it hard emotionally which could be a major cause of his loss of appetite. #LCSM T1 |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: We need to better use telemedicine. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2. What support resources are available ONLINE for lung cancer patients, caregivers, and families? #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @HenningWillers @Smiles4Nana T1 Coordinate better specialists' clinic days. Related specialists often have different clinic days spreading out treatment time and increasing time and expense for patient and family. #lcsm |
| #LCSM Chat @lcsmchat RT @HenningWillers: @lgreco_ny @Smiles4Nana @MGHCancerCenter T1 So agree, all same day whenever possible. We do suffer with our patients. Traffic and parking so hard in the city. Parking for multiple treatments should be FREE! #lcsm |
 | Dr. Jan Marie Eberth @jmeberth Epidemiologist and LDCT screening advocate here from UofSC... #lcsm Gosh I need you guys tonight. Been too long!! |
| Tiffini Joseph @Smiles4Nana @lgreco_ny @HenningWillers The medical team should really listen to their patients and their needs #LCSM |
| Janet Freeman-Daily @JFreemanDaily T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sources. Check it out! https://t.co/gn7LxTiJXx |
| Henning Willers, MD @HenningWillers RT @JFreemanDaily: T2: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sources. Check it out! https://t.co/gn7LxTiJXx |
| #LCSM Chat @lcsmchat RT @Smiles4Nana: @lgreco_ny @HenningWillers The medical team should really listen to their patients and their needs #LCSM |
| Charu Aggarwal, MD, MPH, FASCO @CharuAggarwalMD @JFreemanDaily CancerGRACE website by @JackWestMD has information on many topics spanning the spectrum from diagnosis to treatments.#LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sources. Check it out! https://t.co/gn7LxTiJXx |
| #LCSM Chat @lcsmchat RT @CharuAggarwalMD: @JFreemanDaily CancerGRACE website by @JackWestMD has information on many topics spanning the spectrum from diagnosis to treatments.#LCSM |
| Tiffini Joseph @Smiles4Nana @carlos_rdb97 Is he interested in any type of support group? That might help, even if it’s online #LCSM |
| Laura Greco @lgreco_ny T2 I have discovered recently that more and more docs are buying into virtual visits over internet. This is huge advantage. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Patients can ask their physicians for current medical literature that relates to the patient's specific diagnosis and molecular profile. And ask your pathologist to discuss your case with you. Or look at your cancer with your pathologist and see what you are dealing with. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @jmeberth Welcome back to #LCSM! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sources. Check it out! https://t.co/gn7LxTiJXx |
| Dr. Jan Marie Eberth @jmeberth T1. My team recently did 2 studies on financial toxicity in cancer survivors. Younger persons more likely to be impacted... Medicare for all sound good about now? #lcsm https://t.co/WwcETHAhgj |
| Henning Willers, MD @HenningWillers @JFreemanDaily T2 How many hospitals offer online forums/blogs for their #lungcancer patients? Wish we had something like that at MGH #lcsm |
| LungCancer.net @LungCancer_HU RT @TimAllenMDJD: Patients can ask their physicians for current medical literature that relates to the patient's specific diagnosis and molecular profile. And ask your pathologist to discuss your case with you. Or look at your cancer with your pathologist and see what you are dealing with. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T2. Take advantage of the clinic notes, lab reports, scan reports, etc. available from your clinic/hospital's patient portal. #LCSM |
| Charu Aggarwal, MD, MPH, FASCO @CharuAggarwalMD Resources for patients on variety of topics related to #LungCancer below #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: T2 I have discovered recently that more and more docs are buying into virtual visits over internet. This is huge advantage. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Patients can ask their physicians for current medical literature that relates to the patient's specific diagnosis and molecular profile. And ask your pathologist to discuss your case with you. Or look at your cancer with your pathologist and see what you are dealing with. #LCSM |
| Carlos @carlos_rdb97 @Smiles4Nana Would you know of any support groups online? I could give it a try. He is still actively on his phone, reading daily messages from his loved ones telling him to keep being strong. I can suggest and see what he thinks. Thank you. #lcsm |
| #LCSM Chat @lcsmchat RT @jmeberth: T1. My team recently did 2 studies on financial toxicity in cancer survivors. Younger persons more likely to be impacted... Medicare for all sound good about now? #lcsm https://t.co/WwcETHAhgj |
| #LCSM Chat @lcsmchat RT @HenningWillers: @JFreemanDaily T2 How many hospitals offer online forums/blogs for their #lungcancer patients? Wish we had something like that at MGH #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2. Take advantage of the clinic notes, lab reports, scan reports, etc. available from your clinic/hospital's patient portal. #LCSM |
| Dr. Jan Marie Eberth @jmeberth T1. And here’s another one of our studies on financial toxicity in cancer survivors... rural residents had worse outcomes. https://t.co/unF8vsSk20 #lcsm |
| Janet Freeman-Daily @JFreemanDaily @HenningWillers Many hospitals offer a link to https://t.co/JaLiJ7d9Ar site for patient blogs--it's a good way to keep friends and loved ones updated on a patient's status. You can make it public, or only visible to people you invite. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @HenningWillers Many hospitals offer a link to https://t.co/JaLiJ7d9Ar site for patient blogs--it's a good way to keep friends and loved ones updated on a patient's status. You can make it public, or only visible to people you invite. #LCSM |
| #LCSM Chat @lcsmchat RT @jmeberth: T1. And here’s another one of our studies on financial toxicity in cancer survivors... rural residents had worse outcomes. https://t.co/unF8vsSk20 #lcsm |
 | Beverly A. Zavaleta MD @BZavaletaMD RT @JFreemanDaily: T2: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sources. Check it out! https://t.co/gn7LxTiJXx |
| Tiffini Joseph @Smiles4Nana @carlos_rdb97 There’s a large lung cancer community on Facebook. I’ve made some amazing friends that are now like family. Does he or you use Facebook? #LCSM |
| Benjamin King, MD @BenjaminKingMD Great resources for online communities through apps like @CancerAid_app, graduate of @CSaccelerator here. Pt Education sites @RTAnswers_org for videos, side effect charts to allow more informed questions for providers #LCSM |
| Janet Freeman-Daily @JFreemanDaily @RedGia @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter Alas, very few medical centers provide navigators for #lungcancer patients--unlike breast cancer. #LCSM |
| Carlos @carlos_rdb97 T2 #LCSM I found this article very helpful. https://t.co/Lxe1qZoCgn I have created several bookmarks to keep track. I was also told by a quality coordinator to bring in my research at our appointment with his Onco, so I can have suggestions. Is this a good idea? (1) |
| Henning Willers, MD @HenningWillers @MGHCancerCenter @MGHThoracicOnc |
| Carlos @carlos_rdb97 T2 #LCSM (2) step over someone's shoes. |
 | Geri Massa @GeriGerim13 Hello, sorry I’m late, can someone send me the linc where I can see the thread #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Agree. Service lines and patient management teams could help make this happen. #PatientsFirst #LCSM |
| Carlos @carlos_rdb97 @Smiles4Nana Yes, we both do. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @carlos_rdb97 @Smiles4Nana There are many online support groups. Does he know what type of #lungcancer he has? #LCSM |
 | Austin Sim, MD JD @A_CT_SimMDJD RT @JFreemanDaily: T2: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sources. Check it out! https://t.co/gn7LxTiJXx |
| Tiffini Joseph @Smiles4Nana @JFreemanDaily @RedGia @HenningWillers @lgreco_ny @MGHCancerCenter That’s unfortunate. We have one at the hospital I work at. I wish that was available for everyone #LCSM |
| Laura Greco @lgreco_ny @jmeberth My financial hardship has nothing to do with insurance. It has to do with getting to lung cancer specialists. Medicare would cost me more $$, because cost for drugs is higher for government and other costs are reasonable. #lcsm |
| Dr. Jan Marie Eberth @jmeberth T2. @GO2Foundation has many online resources and can link up patients with a buddy to chat with who’s been through #lung cancer. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3. What support resources and services are available for lung cancer patients, caregivers, and families who are **NOT** ONLINE? #LCSM |
| Carlos @carlos_rdb97 @JFreemanDaily @Smiles4Nana #lcsm His first diagnosis was SCC but 2 weeks after, he got a revision that adeno cells were also found and that these cannot be excluded. So I'm assuming he has adenosquamous carcinoma? Thanks. |
| Tiffini Joseph @Smiles4Nana @RedGia @carlos_rdb97 My mom used inspire as well. She really liked it #LCSM |
| #LCSM Chat @lcsmchat RT @BenjaminKingMD1: Great resources for online communities through apps like @CancerAid_app, graduate of @CSaccelerator here. Pt Education sites @RTAnswers_org for videos, side effect charts to allow more informed questions for providers #LCSM |
| Beverly A. Zavaleta MD @BZavaletaMD RT @JFreemanDaily: @IshwariaMD T1. In the first months of diagnosis and treatment (especially curative chemotherapy-radiation), the family's entire calendar revolves around medical appointments and coping with side effects. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @RedGia @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter Alas, very few medical centers provide navigators for #lungcancer patients--unlike breast cancer. #LCSM |
| Carlos @carlos_rdb97 @Smiles4Nana @RedGia Thanks, Tiffini. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Agree. Service lines and patient management teams could help make this happen. #PatientsFirst #LCSM |
| Janet Freeman-Daily @JFreemanDaily @GeriGerim13 Set Twitter to filter for posts containing "#LCSM" to see the ongoing conversation in real time! |
| #LCSM Chat @lcsmchat RT @jmeberth: T2. @GO2Foundation has many online resources and can link up patients with a buddy to chat with who’s been through #lung cancer. #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @jmeberth My financial hardship has nothing to do with insurance. It has to do with getting to lung cancer specialists. Medicare would cost me more $$, because cost for drugs is higher for government and other costs are reasonable. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3. What support resources and services are available for lung cancer patients, caregivers, and families who are **NOT** ONLINE? #LCSM |
| Beverly A. Zavaleta MD @BZavaletaMD RT @BenjaminKingMD1: Great resources for online communities through apps like @CancerAid_app, graduate of @CSaccelerator here. Pt Education sites @RTAnswers_org for videos, side effect charts to allow more informed questions for providers #LCSM |
| #LCSM Chat @lcsmchat RT @Smiles4Nana: @RedGia @carlos_rdb97 My mom used inspire as well. She really liked it #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @GeriGerim13 Set Twitter to filter for posts containing "#LCSM" to see the ongoing conversation in real time! |
| Dr. Jan Marie Eberth @jmeberth @lgreco_ny You have good employer insurance? That’s great! I think my findings have to do more with the higher rates of un and underinsured individuals in younger age groups. Perhaps I should have said “Medicare for those that want it” :) Better idea anyway, I think. #LCSM |
| Laura Greco @lgreco_ny @JFreemanDaily T3 here I would inquire with local hospital. You might have to ask multiple times. I'm still finding out things and it's been almost 5 years. #lcsm |
| Carlos @carlos_rdb97 @Smiles4Nana @RedGia Thank you so much. I will do so after the chat. #lcsm |
| Beverly A. Zavaleta MD @BZavaletaMD RT @JFreemanDaily: T3. What support resources and services are available for lung cancer patients, caregivers, and families who are **NOT** ONLINE? #LCSM |
| Janet Freeman-Daily @JFreemanDaily @carlos_rdb97 @Smiles4Nana Carlos, I can provide more support information for your dad's case after the chat is over. My chemobrain is already on overload moderating the chat! #LCSM |
 | Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh @JFreemanDaily T1..... access to meds and affordability in Canada, and lack of clinical trials #LCSM |
| #LCSM Chat @lcsmchat RT @jmeberth: @lgreco_ny You have good employer insurance? That’s great! I think my findings have to do more with the higher rates of un and underinsured individuals in younger age groups. Perhaps I should have said “Medicare for those that want it” :) Better idea anyway, I think. #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @JFreemanDaily T3 here I would inquire with local hospital. You might have to ask multiple times. I'm still finding out things and it's been almost 5 years. #lcsm |
| Carlos @carlos_rdb97 @JFreemanDaily @Smiles4Nana Thank you very much Janet. #lcsm |
| #LCSM Chat @lcsmchat RT @Kamacintosh: @JFreemanDaily T1..... access to meds and affordability in Canada, and lack of clinical trials #LCSM |
| kristen kimball @KimballKristen @HenningWillers @Smiles4Nana T1 more opportunities for remote / virtual consult for second opinions? And to guide local community onc? #LCSM |
| Gia Sonata @RedGia RT @TimAllenMDJD: Agree. Service lines and patient management teams could help make this happen. #PatientsFirst #LCSM |
| Dr. Jan Marie Eberth @jmeberth @KimballKristen @HenningWillers @Smiles4Nana Yes! Wish more places did more virtual case management, nodule clinics, etc. #LCSM |
| Carlos @carlos_rdb97 @Kamacintosh @JFreemanDaily T1 #lcsm I find the lack of clinical trials also a slight problem. I haven't dove deep into it as we haven't started treatments. |
| Janet Freeman-Daily @JFreemanDaily #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a good second opinion, lung cancer specialists near you, and phone buddies who have dealt with lung cancer themselves #LCSM |
 | Matthew Smeltzer @MattSmeltzer @JFreemanDaily @lcsmchat @RedGia @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter Agree, we need more #lungcancer nurse navigators! #lcsm |
| kristen kimball @KimballKristen @lcsmchat @JFreemanDaily Yea holidays are not so jolly... ❤️ #lcsm finally out of that Uber 🤢 |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a good second opinion, lung cancer specialists near you, and phone buddies who have dealt with lung cancer themselves #LCSM |
| Henning Willers, MD @HenningWillers RT @JFreemanDaily: #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a good second opinion, lung cancer specialists near you, and phone buddies who have dealt with lung cancer themselves #LCSM |
| Tiffini Joseph @Smiles4Nana @carlos_rdb97 @Kamacintosh @JFreemanDaily I believe @GO2Foundation has a clinical trial matching program. They also have a wealth of support for you and your dad #LCSM |
| Tiffini Joseph @Smiles4Nana RT @JFreemanDaily: #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a good second opinion, lung cancer specialists near you, and phone buddies who have dealt with lung cancer themselves #LCSM |
| #LCSM Chat @lcsmchat RT @KimballKristen: @HenningWillers @Smiles4Nana T1 more opportunities for remote / virtual consult for second opinions? And to guide local community onc? #LCSM |
| #LCSM Chat @lcsmchat RT @jmeberth: @KimballKristen @HenningWillers @Smiles4Nana Yes! Wish more places did more virtual case management, nodule clinics, etc. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a good second opinion, lung cancer specialists near you, and phone buddies who have dealt with lung cancer themselves #LCSM |
| #LCSM Chat @lcsmchat RT @MattSmeltzer: @JFreemanDaily @lcsmchat @RedGia @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter Agree, we need more #lungcancer nurse navigators! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD But we appreciate your moderating it, @JFreemanDaily! You do it so well! #LCSM |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @JFreemanDaily: @HenningWillers Many hospitals offer a link to https://t.co/JaLiJ7d9Ar site for patient blogs--it's a good way to keep friends and loved ones updated on a patient's status. You can make it public, or only visible to people you invite. #LCSM |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @JFreemanDaily: T2: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sources. Check it out! https://t.co/gn7LxTiJXx |
| Janet Freeman-Daily @JFreemanDaily T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with lung cancer experts about questions patients want to ask about common topics. https://t.co/54l1LP0U7v #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with lung cancer experts about questions patients want to ask about common topics. https://t.co/54l1LP0U7v #LCSM |
| Tiffini Joseph @Smiles4Nana T3 some hospitals have in person support groups. Our local Gildas Club has one for many years, not sure of it is still active #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with lung cancer experts about questions patients want to ask about common topics. https://t.co/54l1LP0U7v #LCSM |
| #LCSM Chat @lcsmchat RT @Smiles4Nana: T3 some hospitals have in person support groups. Our local Gildas Club has one for many years, not sure of it is still active #LCSM |
| Tiffini Joseph @Smiles4Nana RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with lung cancer experts about questions patients want to ask about common topics. https://t.co/54l1LP0U7v #LCSM |
| kristen kimball @KimballKristen @jmeberth @lcsmchat @GO2Foundation @LUNGevity also matches patients or caregivers with mentor pts/survivors and caregivers. #lcsm |
| Henning Willers, MD @HenningWillers RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with lung cancer experts about questions patients want to ask about common topics. https://t.co/54l1LP0U7v #LCSM |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with lung cancer experts about questions patients want to ask about common topics. https://t.co/54l1LP0U7v #LCSM |
| #LCSM Chat @lcsmchat RT @KimballKristen: @jmeberth @lcsmchat @GO2Foundation @LUNGevity also matches patients or caregivers with mentor pts/survivors and caregivers. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3. Ask your treating doctor if your hospital/clinic has patient navigators--they help you schedule appointments, find resources, and explain details you might have missed the first time through. #LCSM |
| Laura Greco @lgreco_ny @jmeberth I personally am not looking forward to Medicare. It will cost me tons more for TKI, when currently paying only $5 a month. Even without pharma assist, I would pay $40/mth. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3. Ask your treating doctor if your hospital/clinic has patient navigators--they help you schedule appointments, find resources, and explain details you might have missed the first time through. #LCSM |
| Gia Sonata @RedGia RT @JFreemanDaily: #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a good second opinion, lung cancer specialists near you, and phone buddies who have dealt with lung cancer themselves #LCSM |
| Tiffini Joseph @Smiles4Nana RT @JFreemanDaily: T3. Ask your treating doctor if your hospital/clinic has patient navigators--they help you schedule appointments, find resources, and explain details you might have missed the first time through. #LCSM |
 | Gina @EAustin1969 I’m here lurking #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3. Ask your treating doctor if your hospital/clinic has patient navigators--they help you schedule appointments, find resources, and explain details you might have missed the first time through. #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @jmeberth I personally am not looking forward to Medicare. It will cost me tons more for TKI, when currently paying only $5 a month. Even without pharma assist, I would pay $40/mth. #lcsm |
 | Amy Gravell @amy_gravell RT @NCIprevention: Cigarette, cigar, and pipe smoking all increase the risk of lung cancer. Tobacco smoking causes about 9 out of 10 cases of lung cancer in men and about 8 out of 10 cases of lung cancer in women. But there are other factors, too. https://t.co/IoAo7uDPKZ #LCSM https://t.co/aHv4WuSWGP |
| Tiffini Joseph @Smiles4Nana @JFreemanDaily @GO2Foundation Agreed. The support group through Gildas was specific to lung cancer #LCSM |
| Geri Massa @GeriGerim13 I’m Lurking #lcsm |
 | OurWarOnCancer @OurWarOnCancer RT @lgreco_ny: Thank you so much @JDayGolf and @Miguelnbc for highlighting a generally overlooked and definitely underfunded disease! I've been fighting this disease for nearly five years and my kids are now 7 and 10! #lcsm |
| Janet Freeman-Daily @JFreemanDaily General cancer support groups help with emotional support, but often can't provide info about #lungcancer treatment or side effects. @GO2Foundation maintains a list of #lungcancer in-person groups. @CancerCare has groups too. #LCSM |
| OurWarOnCancer @OurWarOnCancer RT @ivybelkins: Fantastic segment on @TODAYshow about #lungcancer and its impact.Thanks so much to both @JDayGolf and @Miguelnbc for sharing stories of their mothers’ experiences with this disease. Anyone with lungs can get lung cancer. #lcsm @EGFRResisters @AstraZeneca |
| Matthew Smeltzer @MattSmeltzer @carlos_rdb97 @Kamacintosh @JFreemanDaily https://t.co/bNfx5btzeL is a great resource #lcsm |
| Henning Willers, MD @HenningWillers RT @JFreemanDaily: General cancer support groups help with emotional support, but often can't provide info about #lungcancer treatment or side effects. @GO2Foundation maintains a list of #lungcancer in-person groups. @CancerCare has groups too. #LCSM |
| Tiffini Joseph @Smiles4Nana RT @JFreemanDaily: General cancer support groups help with emotional support, but often can't provide info about #lungcancer treatment or side effects. @GO2Foundation maintains a list of #lungcancer in-person groups. @CancerCare has groups too. #LCSM |
| OurWarOnCancer @OurWarOnCancer RT @LungProject: We’re hopeful the new year will bring new opportunities for progress in #lungcancer screening and changes in negative attitudes towards the disease. Together as a community, we can work to end stigma and ensure everyone receives care they deserve #lcsm https://t.co/vA4OwIVEwx |
| Janet Freeman-Daily @JFreemanDaily T4. How can organizations and individuals in the lung cancer community help provide supports to lung cancer patients, caregivers, and families? #LCSM |
| Carlos @carlos_rdb97 @MattSmeltzer @Kamacintosh @JFreemanDaily Will look into this. Thank you very much. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @MattSmeltzer @carlos_rdb97 @Kamacintosh ...but with all the 100s of #lungcancer trials, it's often tough to find one for which you qualify AND gives you the best chance at effective treatment. Needs a better interface, and patients need oncologist's help sorting through options. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: General cancer support groups help with emotional support, but often can't provide info about #lungcancer treatment or side effects. @GO2Foundation maintains a list of #lungcancer in-person groups. @CancerCare has groups too. #LCSM |
| #LCSM Chat @lcsmchat RT @MattSmeltzer: @carlos_rdb97 @Kamacintosh @JFreemanDaily https://t.co/bNfx5btzeL is a great resource #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4. How can organizations and individuals in the lung cancer community help provide supports to lung cancer patients, caregivers, and families? #LCSM |
| Janet Freeman-Daily @JFreemanDaily @GeriGerim13 We see you, Geri! #lcsm |
 | David Magro @DavidMagro1 RT @JMPhoto5: Today I made it to 5 years #lungcancer free! Please #stopthestigma and encourage anyone with lungs to get checked #LCSM #433aday |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @MattSmeltzer @carlos_rdb97 @Kamacintosh ...but with all the 100s of #lungcancer trials, it's often tough to find one for which you qualify AND gives you the best chance at effective treatment. Needs a better interface, and patients need oncologist's help sorting through options. #LCSM |
 | Angus Pratt 🇨🇦 @anguspratt #LCSM lurking tonight on the west coast. Lack of local support groups. So glad we have a variety of online support. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T4. How can organizations and individuals in the lung cancer community help provide supports to lung cancer patients, caregivers, and families? #LCSM |
| #LCSM Chat @lcsmchat RT @anguspratt: #LCSM lurking tonight on the west coast. Lack of local support groups. So glad we have a variety of online support. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: General cancer support groups help with emotional support, but often can't provide info about #lungcancer treatment or side effects. @GO2Foundation maintains a list of #lungcancer in-person groups. @CancerCare has groups too. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @DevikaDasMD @HenningWillers @Smiles4Nana Do you know of any #lungcancer treatment clinical trials conducted by telemedicine? I know it's been tried, but no widespread adoption yet. #LCSM |
| Laura Greco @lgreco_ny RT @JFreemanDaily: @MattSmeltzer @carlos_rdb97 @Kamacintosh ...but with all the 100s of #lungcancer trials, it's often tough to find one for which you qualify AND gives you the best chance at effective treatment. Needs a better interface, and patients need oncologist's help sorting through options. #LCSM |
| Carlos @carlos_rdb97 T4 #lcsm I think the best support would be providing patients and caregivers information early on in the diagnosis. It was really tough waiting for that 'phone call' for 2 weeks for the first appointment with almost no info as to what the biomarkers findings are and what not. |
 | Paula A @paulalv RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with lung cancer experts about questions patients want to ask about common topics. https://t.co/54l1LP0U7v #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @DevikaDasMD @HenningWillers @Smiles4Nana Do you know of any #lungcancer treatment clinical trials conducted by telemedicine? I know it's been tried, but no widespread adoption yet. #LCSM |
| #LCSM Chat @lcsmchat RT @carlos_rdb97: T4 #lcsm I think the best support would be providing patients and caregivers information early on in the diagnosis. It was really tough waiting for that 'phone call' for 2 weeks for the first appointment with almost no info as to what the biomarkers findings are and what not. |
| Janet Freeman-Daily @JFreemanDaily @Kamacintosh @lcsmchat @lgreco_ny Remember to put #lcsm in your tweets so they will appear in the chat. |
| Tiffini Joseph @Smiles4Nana T4 I’ve found a great support through social media and working with @GO2Foundation Losing my mom was devastating but surrounding myself w/people who “get it” has really helped with my ongoing grief #LCSM |
| Laura Greco @lgreco_ny RT @anguspratt: #LCSM lurking tonight on the west coast. Lack of local support groups. So glad we have a variety of online support. |
| Tiffini Joseph @Smiles4Nana RT @carlos_rdb97: T4 #lcsm I think the best support would be providing patients and caregivers information early on in the diagnosis. It was really tough waiting for that 'phone call' for 2 weeks for the first appointment with almost no info as to what the biomarkers findings are and what not. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @Smiles4Nana: T4 I’ve found a great support through social media and working with @GO2Foundation Losing my mom was devastating but surrounding myself w/people who “get it” has really helped with my ongoing grief #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Kamacintosh @lcsmchat @lgreco_ny Remember to put #lcsm in your tweets so they will appear in the chat. |
| #LCSM Chat @lcsmchat RT @Smiles4Nana: T4 I’ve found a great support through social media and working with @GO2Foundation Losing my mom was devastating but surrounding myself w/people who “get it” has really helped with my ongoing grief #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #PatientsFirst #LCSM |
 | Jan's way @JanCloward1 RT @TestLungCancer: When Dening Day, mom of PGA golf champion Jason Day, found out she had #lungcancer, she had questions and they were determined to find answers. Learn how getting a complete diagnosis helped them find a treatment right for her type of lung cancer. #LCSM |
| Charu Aggarwal, MD, MPH, FASCO @CharuAggarwalMD @JFreemanDaily T4. By providing education and access. There are so many ways in which we provide information to pts and caregivers. "Access" is HUGE - just simply connecting a pt to a clinical trial at another institution, or connecting them to a support group may make a big difference. #LCSM |
| Janet Freeman-Daily @JFreemanDaily I got a bit behind replying to tweets! (BAD moderator) We’re in our final minutes - closing thoughts? #LCSM |
| #LCSM Chat @lcsmchat RT @CharuAggarwalMD: @JFreemanDaily T4. By providing education and access. There are so many ways in which we provide information to pts and caregivers. "Access" is HUGE - just simply connecting a pt to a clinical trial at another institution, or connecting them to a support group may make a big difference. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I got a bit behind replying to tweets! (BAD moderator) We’re in our final minutes - closing thoughts? #LCSM |
| #LCSM Chat @lcsmchat @JFreemanDaily Thank you for moderating this evening, Janet. #lcsm |
 | Lydia Christina (she/her) @prettypvalue RT @jmeberth: T1. My team recently did 2 studies on financial toxicity in cancer survivors. Younger persons more likely to be impacted... Medicare for all sound good about now? #lcsm https://t.co/WwcETHAhgj |
| Henning Willers, MD @HenningWillers @JFreemanDaily An hour well spent 🙏 #lcsm |
| Tiffini Joseph @Smiles4Nana T4 I also think follow up is so important. Be proactive in reaching out to friends/family that are dealing with a cancer dx. You don’t know what you need and probably won’t be the one to make the 1st call #LCSM |
| kristen kimball @KimballKristen @Smiles4Nana @GO2Foundation I agree - honestly this community serves the support function for me better than my grief group, which I like and which is run by a competent therapist. But my virtual LC family REALLY gets lung cancer and the devastation it wreaks upon pt & family #lcsm |
| Janet Freeman-Daily @JFreemanDaily @CharuAggarwalMD Physicians need a more efficient way to find clinical trials at other institutions for which their patient is eligible. Right now, it's mostly up to the patients to find a trial. How can we judge what treatment has the best chance of working? #LCSM |
 | MDedge Hematology & Oncology @MDedgeHemOnc RTOG 0617 trial finds that more is not better when it comes to radiation therapy administered with concurrent chemo in #NSCLC. https://t.co/E2L9xc1EXX #lcsm https://t.co/vFmKI3qEGh |
| Carlos @carlos_rdb97 #lcsm I would just like to thank everyone in this community. My Dad was just recently diagnosed and this was my first #lcsm chat. It's a good feeling to be in a setting with people that are going or have gone through this experience. Thank you again everyone. |
| Tiffini Joseph @Smiles4Nana @KimballKristen @GO2Foundation I completely agree. The best thing lung cancer has done for me is give me a second “family” #lcsm |
| Laura Greco @lgreco_ny RT @JFreemanDaily: @CharuAggarwalMD Physicians need a more efficient way to find clinical trials at other institutions for which their patient is eligible. Right now, it's mostly up to the patients to find a trial. How can we judge what treatment has the best chance of working? #LCSM |
| kristen kimball @KimballKristen @JFreemanDaily GOOD moderator! Thank you everyone. #lcsm |
| Carlos @carlos_rdb97 #lcsm and thank you @JFreemanDaily for moderating the event. |
| Charu Aggarwal, MD, MPH, FASCO @CharuAggarwalMD @JFreemanDaily Yes! With hundreds of trials, it is often tough- even for physicians to come up with a trial recommendation without investing some time. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD When it comes to our lung cancer patients and families, we have more to do. Telemedicine and other new tech can help and should be better used. And coordinating the patient's visit for the convenience of the patient should become the priority. #LCSM |
| Janet Freeman-Daily @JFreemanDaily Thanks for joining tonight's #LCSM Chat on "Ways to support #lungcancer patients and caregivers." Pls join us for our next chat on Feb 6, 2020: "Dealing with Lung Cancer Stigma and Nihilism" (moderated by @BrendonStilesMD). Happy 2020! |
 | Dr. David Tom Cooke @DavidCookeMD RT @JFreemanDaily: Thanks for joining tonight's #LCSM Chat on "Ways to support #lungcancer patients and caregivers." Pls join us for our next chat on Feb 6, 2020: "Dealing with Lung Cancer Stigma and Nihilism" (moderated by @BrendonStilesMD). Happy 2020! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @CharuAggarwalMD Physicians need a more efficient way to find clinical trials at other institutions for which their patient is eligible. Right now, it's mostly up to the patients to find a trial. How can we judge what treatment has the best chance of working? #LCSM |
| Tiffini Joseph @Smiles4Nana Thank you @JFreemanDaily for moderating. I’m so happy I was able to participate tonight 😊 #LCSM |
| Benjamin King, MD @BenjaminKingMD Thank you all for a great discussion to stimulate ideas and improve all facets of #lungcancer care! #lcsm |
| Tiffini Joseph @Smiles4Nana RT @JFreemanDaily: Thanks for joining tonight's #LCSM Chat on "Ways to support #lungcancer patients and caregivers." Pls join us for our next chat on Feb 6, 2020: "Dealing with Lung Cancer Stigma and Nihilism" (moderated by @BrendonStilesMD). Happy 2020! |
| Janet Freeman-Daily @JFreemanDaily @carlos_rdb97 The feeling of community with others who understand the #lungcancer experience is one of the best parts of #LCSM Chat! |
| Tiffini Joseph @Smiles4Nana RT @JFreemanDaily: @carlos_rdb97 The feeling of community with others who understand the #lungcancer experience is one of the best parts of #LCSM Chat! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you for moderating, @JFreemanDaily. It has been a privilege to participate. #LCSM |
| Henning Willers, MD @HenningWillers @MDedgeHemOnc An alternative interpretation is that a higher dose of #radiotherapy should not be delivered with the techniques and normal tissue constraints used in that trial. It is very possible to deliver a higher dose safely and it may indeed be better. We need data. @MGHThoracicOnc #lcsm |
 | Katsuaki Maehara Ph.D. 🇯🇵 @KatsuakiMaehara Efficacy of Platinum/Pemetrexed Combination Chemotherapy in ALK-Positive NSCLC Refractory to Alectinib & Ceritinib … Second generation TKIs. #LCSM @IASLC @JTOonline https://t.co/xV6cy47Kxu |
| Henning Willers, MD @HenningWillers RT @JFreemanDaily: @carlos_rdb97 The feeling of community with others who understand the #lungcancer experience is one of the best parts of #LCSM Chat! |
| Henning Willers, MD @HenningWillers RT @JFreemanDaily: Thanks for joining tonight's #LCSM Chat on "Ways to support #lungcancer patients and caregivers." Pls join us for our next chat on Feb 6, 2020: "Dealing with Lung Cancer Stigma and Nihilism" (moderated by @BrendonStilesMD). Happy 2020! |
| kristen kimball @KimballKristen RT @JFreemanDaily: @carlos_rdb97 The feeling of community with others who understand the #lungcancer experience is one of the best parts of #LCSM Chat! |
| Katsuaki Maehara Ph.D. 🇯🇵 @KatsuakiMaehara RT @ivybelkins: Fantastic segment on @TODAYshow about #lungcancer and its impact.Thanks so much to both @JDayGolf and @Miguelnbc for sharing stories of their mothers’ experiences with this disease. Anyone with lungs can get lung cancer. #lcsm @EGFRResisters @AstraZeneca |
| Gia Sonata @RedGia RT @TimAllenMDJD: #PatientsFirst #LCSM |
| Janet Freeman-Daily @JFreemanDaily @carlos_rdb97 Hope #LCSM Chat gave you several new resources to check out. Do you have any other questions for me? |
| #LCSM Chat @lcsmchat RT @Smiles4Nana: T4 I also think follow up is so important. Be proactive in reaching out to friends/family that are dealing with a cancer dx. You don’t know what you need and probably won’t be the one to make the 1st call #LCSM |
| #LCSM Chat @lcsmchat RT @KimballKristen: @Smiles4Nana @GO2Foundation I agree - honestly this community serves the support function for me better than my grief group, which I like and which is run by a competent therapist. But my virtual LC family REALLY gets lung cancer and the devastation it wreaks upon pt & family #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @CharuAggarwalMD Physicians need a more efficient way to find clinical trials at other institutions for which their patient is eligible. Right now, it's mostly up to the patients to find a trial. How can we judge what treatment has the best chance of working? #LCSM |
| #LCSM Chat @lcsmchat RT @carlos_rdb97: #lcsm I would just like to thank everyone in this community. My Dad was just recently diagnosed and this was my first #lcsm chat. It's a good feeling to be in a setting with people that are going or have gone through this experience. Thank you again everyone. |
| #LCSM Chat @lcsmchat RT @Smiles4Nana: @KimballKristen @GO2Foundation I completely agree. The best thing lung cancer has done for me is give me a second “family” #lcsm |
| Janet Freeman-Daily @JFreemanDaily @HenningWillers Thanks! Hope you'll join us again! #lcsm |
| Dr. Jan Marie Eberth @jmeberth Those of you interested in rural health issues in cancer, follow @RMHRC_UofSC, where we share many more scientific papers, tools and other resources. #LCSM |
 | Sarah Elizabeth @saraheliz1 RT @LungCancerFaces: I try to keep this account as non-political as possible, however, I find this tweet offensive. @realDonaldTrump has had nothing to do with the decrease in lung cancer deaths. This is silly and should be deleted. #lcsm |
| Dr. Jan Marie Eberth @jmeberth @JFreemanDaily, enjoyed this chat as always!! #LCSM Thanks to my lung cancer community. https://t.co/8Ha2j2oFzI |
#LCSM content from Twitter.