#LCSM Transcript

Healthcare social media transcript of the #LCSM hashtag.
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Janet Freeman-Daily @JFreemanDaily
Welcome to #LCSM Chat! Tonight we will be discussing “Ways to support #lungcancer patients and caregivers.” More info on our blog at https://t.co/HOjVOZBdPg
Faces of Lung Cancer @LungCancerFaces
RT @JMPhoto5: Today I made it to 5 years #lungcancer free! Please #stopthestigma and encourage anyone with lungs to get checked #LCSM #433a
Faces of Lung Cancer @LungCancerFaces
RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “Ways to support #lungcancer patients and caregivers.” More info on…
Pramesh CS @cspramesh
RT @ShipleyDeb: This illustrates the horrific inequality of #lungcancer research funding!! https://t.co/MxDdfD7qTX
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “Ways to support #lungcancer patients and caregivers.” More info on…
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “Ways to support #lungcancer patients and caregivers.” More info on…
Carlos @carlos_rdb97
My 57-year old Dad was diagnosed with Stage IV NSCLC last December 18th, 2019 #LCSM
Janet Freeman-Daily @JFreemanDaily
We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM
Janet Freeman-Daily @JFreemanDaily
@carlos_rdb97 Welcome to #LCSM Chat, Carlos!
Timothy Craig Allen @TimAllenMDJD
Tim here. #LCSM
Janet Freeman-Daily @JFreemanDaily
I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #LCSM
Pramesh CS @cspramesh
RT @plh4lisa: #LungCancer, the most deadly, killing more than breast, colorectal & prostate cancers COMBINED. A misunderstood disease, rece…
Janet Freeman-Daily @JFreemanDaily
@TimAllenMDJD Hi Tim! Glad you could drop in. #LCSM
Faces of Lung Cancer @LungCancerFaces
Deana in windy Los Angeles here. I’ll be tweeting from the @lcsmchat account tonight. #lcsm
Charu Aggarwal, MD, MPH @CharuAggarwalMD
@JFreemanDaily Medical Oncologist here from Philadelphia, PA. Happy new year everyone! #LCSM
LungCancer.net @LungCancer_HU
Margot here! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and…
Janet Freeman-Daily @JFreemanDaily
If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb
Tiffini Joseph @Smiles4Nana
@JFreemanDaily Tiffini from south Florida. Happy New Year #lcsm
ᴍᴀɴᴜ sʜᴀʀᴍᴀ @TheManuSharma
RT @ShipleyDeb: This illustrates the horrific inequality of #lungcancer research funding!! https://t.co/MxDdfD7qTX
Henning Willers, MD #StaySafeEveryone @HenningWillers
Henning Willers here, clinician scientist treating patients with #lungcancer at MGH. Good evening everybody #lcsm
#LCSM Chat @lcsmchat
@CharuAggarwalMD @JFreemanDaily Welcome! #lcsm
Lung Cancer Sux @LungCancerSux
Glorianne in CT. Hubby diagnosed in 2010. Looking forward to the chat #LCSM
#LCSM Chat @lcsmchat
@LungCancer_HU Hey Margot! #lcsm
Janet Freeman-Daily @JFreemanDaily
@CharuAggarwalMD Welcome, Charu! #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/…
#LCSM Chat @lcsmchat
@Smiles4Nana @JFreemanDaily Yay! Great to “see” you. #lcsm
Janet Freeman-Daily @JFreemanDaily
@Smiles4Nana Hi Tiffini! Tell us about your #lungcancer connection? #LCSM
Gia Sonata @RedGia
@JFreemanDaily Hi there! #lcsm
#LCSM Chat @lcsmchat
@HenningWillers Welcome! #lcsm
Tiffini Joseph @Smiles4Nana
@lcsmchat @JFreemanDaily Same!! So glad I’m not working tonight #lcsm
#LCSM Chat @lcsmchat
@LungCancerSux Hi Glorianne! #lcsm
#LCSM Chat @lcsmchat
@RedGia @JFreemanDaily Hey you! #lcsm
Janet Freeman-Daily @JFreemanDaily
@LungCancerFaces @lcsmchat Hey there, Deana--taking a break from grandmommying? #LCSM
Janet Freeman-Daily @JFreemanDaily
@LungCancer_HU Welcome Margot! #LCSM
Benjamin King, MD @BenjaminKingMD1
Good Evening. Ben King, Radiation Oncologist joining from @CedarsSinai community site in Los Angeles. #lcsm
#LCSM Chat @lcsmchat
@JFreemanDaily @LungCancerFaces He’s a colicky little guy, but luckily his mama’s got him now! #lcsm
Laura Greco @lgreco_ny
Laura here from chilly upstate NY #lcsm
Tiffini Joseph @Smiles4Nana
My mom was dc w/stage4 LC in 2008, she passed away in 2010. I’ve been advocating ever since #LCSM
kristen kimball @KimballKristen
@JFreemanDaily Kris, currently in Uber en route home from grief group. Trying not to get carsick here in Boston. #LCSM
Janet Freeman-Daily @JFreemanDaily
@HenningWillers Good evening! Glad you could join us. #LCSM
#LCSM Chat @lcsmchat
@BenjaminKingMD1 @CedarsSinai Welcome! Where is your practice located? #lcsm
Janet Freeman-Daily @JFreemanDaily
@RedGia Hey Gia! #LCSM
NCI Cancer Stats @NCICancerStats
In 2015, most #LungCancer cases were diagnosed in the distant stage, which has a lower 5-year relative survival rate. Explore more stats on this cancer here: https://t.co/BVqvN4e1pm #LCSM @lcsmchat https://t.co/PLXBby5X3G
Janet Freeman-Daily @JFreemanDaily
@BenjaminKingMD1 @CedarsSinai Good to see you here! #LCSM
#LCSM Chat @lcsmchat
@lgreco_ny Hey Laura! How’s it going? #lcsm
Janet Freeman-Daily @JFreemanDaily
@lgreco_ny Hey, glad you're here! #LCSM
Tiffini Joseph @Smiles4Nana
@lgreco_ny Glad to see you ❤️ #LCSM
#LCSM Chat @lcsmchat
@KimballKristen @JFreemanDaily Thanks for joining, Kris. I know the holidays have not been easy for you. xo #lcsm
Janet Freeman-Daily @JFreemanDaily
Please remember to use #lcsm in all your tweets so others participating in the chat can see them.
Laura Greco @lgreco_ny
@lcsmchat Just peachy! :) #lcsm
Janet Freeman-Daily @JFreemanDaily
If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience
Janet Freeman-Daily @JFreemanDaily
Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM
#LCSM Chat @lcsmchat
@lgreco_ny Lol, right... #lcsm
Gia Sonata @RedGia
@JFreemanDaily Dx stage IV NSCLC 9/2014; 14cm lung tumor w/mets. Stable for 2+ years at 5cm remaining in lung, no change, no treatment since 2017. Enjoying life. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them.
Janet Freeman-Daily @JFreemanDaily
I will announce FOUR topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM
Dr Janet R. Wojcik @JanetRWojcikPhD
RT @NCICancerStats: In 2015, most #LungCancer cases were diagnosed in the distant stage, which has a lower 5-year relative survival rate. E…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not displa…
Janet Freeman-Daily @JFreemanDaily
Glad to see familiar Twitter handles as well as new participants tonight! #LCSM
Janet Freeman-Daily @JFreemanDaily
T1. What are the biggest challenges faced by lung cancer patients, caregivers and families? Which factors most influence these challenges--cancer staging, family status, finances, access to lung cancer specialists, ... ? #LCSM
Sally Herschorn, MD @SHerschorn
RT @findlungcancer: Let’s all tell @TODAYshow about #lungcancer screening @BrendonStilesMD @DrewMoghanaki @EJFloresMD @hodakotb @SavannahGu
Janet Freeman-Daily @JFreemanDaily
@lgreco_ny @lcsmchat Peaches have pits too ... #LCSM
Ishwaria Subbiah, MD MS @IshwariaMD
@JFreemanDaily Hi #lcsm! #SupportiveCare #PalliativeCare physician here from Houston. Following along and will chime in as the kids allow.
Faces of Lung Cancer @LungCancerFaces
RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/…
Charu Aggarwal, MD, MPH @CharuAggarwalMD
@JFreemanDaily T1. Access to specialty care, molecular testing, and clinical trials. #LCSM
Tiffini Joseph @Smiles4Nana
T1 it was many years ago, but we felt very isolated. Mom felt guilty, like her cancer was her fault #LCSM
#LCSM Chat @lcsmchat
@BenjaminKingMD1 @CedarsSinai @CSCancerCare I’m sitting right here in Encino, neighbor! -Deana #lcsm
Janet Freeman-Daily @JFreemanDaily
@IshwariaMD Welcome! Thank the kids for sharing you. ;) #LCSM
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T1. What are the biggest challenges faced by lung cancer patients, caregivers and families? Which factors most influence…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: I will announce FOUR topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Glad to see familiar Twitter handles as well as new participants tonight! #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1. What are the biggest challenges faced by lung cancer patients, caregivers and families? Which factors most influence…
#LCSM Chat @lcsmchat
RT @CharuAggarwalMD: @JFreemanDaily T1. Access to specialty care, molecular testing, and clinical trials. #LCSM
Tiffini Joseph @Smiles4Nana
T1 I think there is a big problem w/access to care. So many still think any oncologist can help them, not realizing they should see 1 specializing in LC #LCSM
Timothy Craig Allen @TimAllenMDJD
#NoStigma #LCSM
Laura Greco @lgreco_ny
@JFreemanDaily T1 Based on my recent experiences, biggest challenge is lack of great durable treatment options. Really hard to maintain optimism when neurosurgeon tells you that you'll probably be back #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @Smiles4Nana: T1 I think there is a big problem w/access to care. So many still think any oncologist can help them, not realizing they s…
Tiffini Joseph @Smiles4Nana
T1 I try to explain that you wouldn’t see an endocrinologist for a heart problem. Cancer is the same #LCSM
#LCSM Chat @lcsmchat
RT @Smiles4Nana: T1 it was many years ago, but we felt very isolated. Mom felt guilty, like her cancer was her fault #LCSM
Timothy Craig Allen @TimAllenMDJD
RT @lgreco_ny: @JFreemanDaily T1 Based on my recent experiences, biggest challenge is lack of great durable treatment options. Really hard…
#LCSM Chat @lcsmchat
RT @Smiles4Nana: T1 I think there is a big problem w/access to care. So many still think any oncologist can help them, not realizing they s…
#LCSM Chat @lcsmchat
RT @lgreco_ny: @JFreemanDaily T1 Based on my recent experiences, biggest challenge is lack of great durable treatment options. Really hard…
#LCSM Chat @lcsmchat
RT @Smiles4Nana: T1 I try to explain that you wouldn’t see an endocrinologist for a heart problem. Cancer is the same #LCSM
Janet Freeman-Daily @JFreemanDaily
T1. For newly diagnosed patients (or those going thru diagnostic process) and family, overcoming the shock and trying to absorb the firehose of new terms, concepts, instructions, tests, etc. is a huge challenge. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1. For newly diagnosed patients (or those going thru diagnostic process) and family, overcoming the shock and trying to…
Gia Sonata @RedGia
@JFreemanDaily At first the hardest part is trying to understand the "language" and understand, truly understand our options. Being lucky enough to survive thus far, financial strain has become my number one issue. Unable to afford RX even w/ins. and creditors 24/7 T1. #lcsm
Tiffini Joseph @Smiles4Nana
RT @JFreemanDaily: T1. For newly diagnosed patients (or those going thru diagnostic process) and family, overcoming the shock and trying to…
Ishwaria Subbiah, MD MS @IshwariaMD
@JFreemanDaily T1: Oof, just about every dimension of life is impacted w this diagnosis, right? Some common challenges that pts share w me - maintaining some semblance of “normalcy” in their and their families’ lives as they go through treatment. Minimizing disruption of the routines. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T1. For newly diagnosed patients (or those going thru diagnostic process) and family, overcoming the shock and trying to…
Deb Smith 🌊🗽 @debsmithbeach
Deb here, from chilly NH. #LCSM
Charu Aggarwal, MD, MPH @CharuAggarwalMD
@Smiles4Nana Sorry to hear that. Unfortunately still stigma associated with the diagnosis. We need to do better as a society, I do think things are changing #LCSM
Carlos @carlos_rdb97
T1 My Dad is a new patient and the one thing I witnessed was how he started deteriorating quicker after his diagnosis. It's been 3 weeks and we are just about to meet his Oncologist on Monday. Mom, the palliative care team and I have been trying our best to maintain (1) #lcsm
#LCSM Chat @lcsmchat
RT @RedGia: @JFreemanDaily At first the hardest part is trying to understand the "language" and understand, truly understand our options.…
#LCSM Chat @lcsmchat
RT @IshwariaMD: @JFreemanDaily T1: Oof, just about every dimension of life is impacted w this diagnosis, right? Some common challenges that…
Carlos @carlos_rdb97
T1 (cont) his quality of life until the appointment. #lcsm
#LCSM Chat @lcsmchat
RT @CharuAggarwalMD: @Smiles4Nana Sorry to hear that. Unfortunately still stigma associated with the diagnosis. We need to do better as a s…
Henning Willers, MD #StaySafeEveryone @HenningWillers
@Smiles4Nana T1 Often difficult to get into large cities to see specialists. What can the specialists do to improve access? #lcsm
#LCSM Chat @lcsmchat
RT @carlos_rdb97: T1 My Dad is a new patient and the one thing I witnessed was how he started deteriorating quicker after his diagnosis. It…
Tiffini Joseph @Smiles4Nana
@CharuAggarwalMD I agree, baby steps #LCSM
Carlos @carlos_rdb97
T1 Dad has bone mets & active hemoptysis and he is currently immobile with no appetite. One of my worries is getting declined treatment. #lcsm
#LCSM Chat @lcsmchat
RT @HenningWillers: @Smiles4Nana T1 Often difficult to get into large cities to see specialists. What can the specialists do to improve acc…
Janet Freeman-Daily @JFreemanDaily
@RedGia T1. Financial toxicity isn't always one's first thought when dealing with #lungcancer, but it pops up pretty shortly thereafter. Without insurance, my first year of surviving lung cancer would have cost $500K+. I was lucky my insurance covered it. #lcsm
Tiffini Joseph @Smiles4Nana
@HenningWillers Would telehealth be an option for some? #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @RedGia T1. Financial toxicity isn't always one's first thought when dealing with #lungcancer, but it pops up pretty sho…
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: @RedGia T1. Financial toxicity isn't always one's first thought when dealing with #lungcancer, but it pops up pretty sho…
Gia Sonata @RedGia
RT @JFreemanDaily: @RedGia T1. Financial toxicity isn't always one's first thought when dealing with #lungcancer, but it pops up pretty sho…
Janet Freeman-Daily @JFreemanDaily
@IshwariaMD T1. In the first months of diagnosis and treatment (especially curative chemotherapy-radiation), the family's entire calendar revolves around medical appointments and coping with side effects. #LCSM
Benjamin King, MD @BenjaminKingMD1
T1. Challenges for #lungcancer (and other cancers), =navigating treatment decisions w/ novel agents for which phase 3 randomized data is just not available. Producing recommendations & explaining these choices to pts/families for #SharedDecisionMaking is challenging #LCSM
Janet Freeman-Daily @JFreemanDaily
@debsmithbeach Welcome! #LCSm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: @IshwariaMD T1. In the first months of diagnosis and treatment (especially curative chemotherapy-radiation), the family'…
Tiffini Joseph @Smiles4Nana
@carlos_rdb97 I’m sorry you all are going through this. My mom has bone Mets too, she said the pain was much better after radiation #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @IshwariaMD T1. In the first months of diagnosis and treatment (especially curative chemotherapy-radiation), the family'…
#LCSM Chat @lcsmchat
RT @BenjaminKingMD1: T1. Challenges for #lungcancer (and other cancers), =navigating treatment decisions w/ novel agents for which phase 3…
Laura Greco @lgreco_ny
@HenningWillers @Smiles4Nana T1 specialists can remove financial toxicity. Is it possible to have all appointments in one day, avoiding hotel, can hospital make available lower cost alternatives. I have literally spent thousands of dollars in Boston @MGHCancerCenter just since September. #lcsm
#LCSM Chat @lcsmchat
RT @Smiles4Nana: @carlos_rdb97 I’m sorry you all are going through this. My mom has bone Mets too, she said the pain was much better after…
Janet Freeman-Daily @JFreemanDaily
@carlos_rdb97 Alas, when lung function gets impacted, things can go downhill fast. Pneumonia almost did me in before #lungcancer treatment even started. #LCSM
#LCSM Chat @lcsmchat
RT @lgreco_ny: @HenningWillers @Smiles4Nana T1 specialists can remove financial toxicity. Is it possible to have all appointments in one d…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @carlos_rdb97 Alas, when lung function gets impacted, things can go downhill fast. Pneumonia almost did me in before #l
Tiffini Joseph @Smiles4Nana
RT @lgreco_ny: @HenningWillers @Smiles4Nana T1 specialists can remove financial toxicity. Is it possible to have all appointments in one d…
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: @carlos_rdb97 Alas, when lung function gets impacted, things can go downhill fast. Pneumonia almost did me in before #l
Deb Smith 🌊🗽 @debsmithbeach
@RedGia @JFreemanDaily T-1. I agree. It’s been the same for me. #LCSM
Timothy Craig Allen @TimAllenMDJD
We need to better use telemedicine. #LCSM
Janet Freeman-Daily @JFreemanDaily
T2. What support resources are available ONLINE for lung cancer patients, caregivers, and families? #LCSM
Laura Greco @lgreco_ny
@HenningWillers @Smiles4Nana T1 Coordinate better specialists' clinic days. Related specialists often have different clinic days spreading out treatment time and increasing time and expense for patient and family. #lcsm
Henning Willers, MD #StaySafeEveryone @HenningWillers
@lgreco_ny @Smiles4Nana @MGHCancerCenter T1 So agree, all same day whenever possible. We do suffer with our patients. Traffic and parking so hard in the city. Parking for multiple treatments should be FREE! #lcsm
Carlos @carlos_rdb97
@Smiles4Nana Thank you Tiffini. Dad received palliative radiation 2 weeks ago and it seems to have helped with his hip pain. Our struggle right now is Dad seems to really taking it hard emotionally which could be a major cause of his loss of appetite. #LCSM T1
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: We need to better use telemedicine. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2. What support resources are available ONLINE for lung cancer patients, caregivers, and families? #LCSM
#LCSM Chat @lcsmchat
RT @lgreco_ny: @HenningWillers @Smiles4Nana T1 Coordinate better specialists' clinic days. Related specialists often have different clinic…
#LCSM Chat @lcsmchat
RT @HenningWillers: @lgreco_ny @Smiles4Nana @MGHCancerCenter T1 So agree, all same day whenever possible. We do suffer with our patients. T…
Jan Marie Eberth @jmeberth
Epidemiologist and LDCT screening advocate here from UofSC... #lcsm Gosh I need you guys tonight. Been too long!!
Tiffini Joseph @Smiles4Nana
@lgreco_ny @HenningWillers The medical team should really listen to their patients and their needs #LCSM
Janet Freeman-Daily @JFreemanDaily
T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sources. Check it out! https://t.co/gn7LxTiJXx
Henning Willers, MD #StaySafeEveryone @HenningWillers
RT @JFreemanDaily: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sourc…
#LCSM Chat @lcsmchat
RT @Smiles4Nana: @lgreco_ny @HenningWillers The medical team should really listen to their patients and their needs #LCSM
Charu Aggarwal, MD, MPH @CharuAggarwalMD
@JFreemanDaily CancerGRACE website by @JackWestMD has information on many topics spanning the spectrum from diagnosis to treatments.#LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sourc…
#LCSM Chat @lcsmchat
RT @CharuAggarwalMD: @JFreemanDaily CancerGRACE website by @JackWestMD has information on many topics spanning the spectrum from diagnosis…
Tiffini Joseph @Smiles4Nana
@carlos_rdb97 Is he interested in any type of support group? That might help, even if it’s online #LCSM
Laura Greco @lgreco_ny
T2 I have discovered recently that more and more docs are buying into virtual visits over internet. This is huge advantage. #lcsm
Timothy Craig Allen @TimAllenMDJD
Patients can ask their physicians for current medical literature that relates to the patient's specific diagnosis and molecular profile. And ask your pathologist to discuss your case with you. Or look at your cancer with your pathologist and see what you are dealing with. #LCSM
Janet Freeman-Daily @JFreemanDaily
@jmeberth Welcome back to #LCSM!
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sourc…
Jan Marie Eberth @jmeberth
T1. My team recently did 2 studies on financial toxicity in cancer survivors. Younger persons more likely to be impacted... Medicare for all sound good about now? #lcsm https://t.co/WwcETHAhgj
Henning Willers, MD #StaySafeEveryone @HenningWillers
@JFreemanDaily T2 How many hospitals offer online forums/blogs for their #lungcancer patients? Wish we had something like that at MGH #lcsm
LungCancer.net @LungCancer_HU
RT @TimAllenMDJD: Patients can ask their physicians for current medical literature that relates to the patient's specific diagnosis and mol…
Janet Freeman-Daily @JFreemanDaily
T2. Take advantage of the clinic notes, lab reports, scan reports, etc. available from your clinic/hospital's patient portal. #LCSM
Arrianna M. Planey @Arrianna_Planey
RT @jmeberth: T1. My team recently did 2 studies on financial toxicity in cancer survivors. Younger persons more likely to be impacted... M…
Charu Aggarwal, MD, MPH @CharuAggarwalMD
Resources for patients on variety of topics related to #LungCancer below #LCSM
#LCSM Chat @lcsmchat
RT @lgreco_ny: T2 I have discovered recently that more and more docs are buying into virtual visits over internet. This is huge advantage.…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Patients can ask their physicians for current medical literature that relates to the patient's specific diagnosis and mol…
Carlos @carlos_rdb97
@Smiles4Nana Would you know of any support groups online? I could give it a try. He is still actively on his phone, reading daily messages from his loved ones telling him to keep being strong. I can suggest and see what he thinks. Thank you. #lcsm
#LCSM Chat @lcsmchat
RT @jmeberth: T1. My team recently did 2 studies on financial toxicity in cancer survivors. Younger persons more likely to be impacted... M…
Gia Sonata @RedGia
@HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter T1. I jump through hoops to align my endo's lab orders to be drawn w/my port flush. Same hospital/portal system. Why should I be charged twice when they get a blood return anyway?! I'd like to see support svcs for "alignment" functions @ my center. #lcsm
H. Jack West, MD @JackWestMD
RT @CharuAggarwalMD: @JFreemanDaily CancerGRACE website by @JackWestMD has information on many topics spanning the spectrum from diagnosis…
#LCSM Chat @lcsmchat
RT @HenningWillers: @JFreemanDaily T2 How many hospitals offer online forums/blogs for their #lungcancer patients? Wish we had something li…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2. Take advantage of the clinic notes, lab reports, scan reports, etc. available from your clinic/hospital's patient po…
Jan Marie Eberth @jmeberth
T1. And here’s another one of our studies on financial toxicity in cancer survivors... rural residents had worse outcomes. https://t.co/unF8vsSk20 #lcsm
Janet Freeman-Daily @JFreemanDaily
@HenningWillers Many hospitals offer a link to https://t.co/JaLiJ7d9Ar site for patient blogs--it's a good way to keep friends and loved ones updated on a patient's status. You can make it public, or only visible to people you invite. #LCSM
#LCSM Chat @lcsmchat
RT @RedGia: @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter T1. I jump through hoops to align my endo's lab orders to be drawn w/m…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @HenningWillers Many hospitals offer a link to https://t.co/JaLiJ7d9Ar site for patient blogs--it's a good way to keep f…
#LCSM Chat @lcsmchat
RT @jmeberth: T1. And here’s another one of our studies on financial toxicity in cancer survivors... rural residents had worse outcomes. ht…
Beverly A. Zavaleta MD @BZavaletaMD
RT @JFreemanDaily: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sourc…
Tiffini Joseph @Smiles4Nana
@carlos_rdb97 There’s a large lung cancer community on Facebook. I’ve made some amazing friends that are now like family. Does he or you use Facebook? #LCSM
Benjamin King, MD @BenjaminKingMD1
Great resources for online communities through apps like @CancerAid_app, graduate of @CSaccelerator here. Pt Education sites @RTAnswers_org for videos, side effect charts to allow more informed questions for providers #LCSM
Janet Freeman-Daily @JFreemanDaily
@RedGia @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter Alas, very few medical centers provide navigators for #lungcancer patients--unlike breast cancer. #LCSM
Carlos @carlos_rdb97
T2 #LCSM I found this article very helpful. https://t.co/Lxe1qZoCgn I have created several bookmarks to keep track. I was also told by a quality coordinator to bring in my research at our appointment with his Onco, so I can have suggestions. Is this a good idea? (1)
Henning Willers, MD #StaySafeEveryone @HenningWillers
@MGHCancerCenter @MGHThoracicOnc
Carlos @carlos_rdb97
T2 #LCSM (2) step over someone's shoes.
Geri Massa @GeriGerim13
Hello, sorry I’m late, can someone send me the linc where I can see the thread #LCSM
Timothy Craig Allen @TimAllenMDJD
Agree. Service lines and patient management teams could help make this happen. #PatientsFirst #LCSM
Carlos @carlos_rdb97
@Smiles4Nana Yes, we both do. #lcsm
Janet Freeman-Daily @JFreemanDaily
@carlos_rdb97 @Smiles4Nana There are many online support groups. Does he know what type of #lungcancer he has? #LCSM
Austin Sim, MD JD @A_CT_SimMDJD
RT @JFreemanDaily: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sourc…
Tiffini Joseph @Smiles4Nana
@JFreemanDaily @RedGia @HenningWillers @lgreco_ny @MGHCancerCenter That’s unfortunate. We have one at the hospital I work at. I wish that was available for everyone #LCSM
Laura Greco @lgreco_ny
@jmeberth My financial hardship has nothing to do with insurance. It has to do with getting to lung cancer specialists. Medicare would cost me more $$, because cost for drugs is higher for government and other costs are reasonable. #lcsm
Jan Marie Eberth @jmeberth
T2. @GO2Foundation has many online resources and can link up patients with a buddy to chat with who’s been through #lung cancer. #LCSM
Janet Freeman-Daily @JFreemanDaily
T3. What support resources and services are available for lung cancer patients, caregivers, and families who are **NOT** ONLINE? #LCSM
Carlos @carlos_rdb97
@JFreemanDaily @Smiles4Nana #lcsm His first diagnosis was SCC but 2 weeks after, he got a revision that adeno cells were also found and that these cannot be excluded. So I'm assuming he has adenosquamous carcinoma? Thanks.
Tiffini Joseph @Smiles4Nana
@RedGia @carlos_rdb97 My mom used inspire as well. She really liked it #LCSM
#LCSM Chat @lcsmchat
RT @BenjaminKingMD1: Great resources for online communities through apps like @CancerAid_app, graduate of @CSaccelerator here. Pt Education…
Beverly A. Zavaleta MD @BZavaletaMD
RT @JFreemanDaily: @IshwariaMD T1. In the first months of diagnosis and treatment (especially curative chemotherapy-radiation), the family'…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @RedGia @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter Alas, very few medical centers provide navigators for #…
Carlos @carlos_rdb97
@Smiles4Nana @RedGia Thanks, Tiffini. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Agree. Service lines and patient management teams could help make this happen. #PatientsFirst #LCSM
Janet Freeman-Daily @JFreemanDaily
@GeriGerim13 Set Twitter to filter for posts containing "#LCSM" to see the ongoing conversation in real time!
#LCSM Chat @lcsmchat
RT @jmeberth: T2. @GO2Foundation has many online resources and can link up patients with a buddy to chat with who’s been through #lung canc…
#LCSM Chat @lcsmchat
RT @lgreco_ny: @jmeberth My financial hardship has nothing to do with insurance. It has to do with getting to lung cancer specialists. Med…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3. What support resources and services are available for lung cancer patients, caregivers, and families who are **NOT**…
Gia Sonata @RedGia
@JFreemanDaily @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter I have a great navigator and she has really done some amazing things for me over the years. I've never broached this topic with her but maybe I will next time. Thanks! #lcsm
matthew herrick @mpherrick
RT @louisianagirl91: With so much going on during the holidays, I completely missed this. I know it's confusing how lung cancer can affect…
Beverly A. Zavaleta MD @BZavaletaMD
RT @BenjaminKingMD1: Great resources for online communities through apps like @CancerAid_app, graduate of @CSaccelerator here. Pt Education…
#LCSM Chat @lcsmchat
RT @Smiles4Nana: @RedGia @carlos_rdb97 My mom used inspire as well. She really liked it #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @GeriGerim13 Set Twitter to filter for posts containing "#LCSM" to see the ongoing conversation in real time!
Jan Marie Eberth @jmeberth
@lgreco_ny You have good employer insurance? That’s great! I think my findings have to do more with the higher rates of un and underinsured individuals in younger age groups. Perhaps I should have said “Medicare for those that want it” :) Better idea anyway, I think. #LCSM
#LCSM Chat @lcsmchat
RT @RedGia: @JFreemanDaily @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter I have a great navigator and she has really done some a…
Laura Greco @lgreco_ny
@JFreemanDaily T3 here I would inquire with local hospital. You might have to ask multiple times. I'm still finding out things and it's been almost 5 years. #lcsm
Carlos @carlos_rdb97
@Smiles4Nana @RedGia Thank you so much. I will do so after the chat. #lcsm
Beverly A. Zavaleta MD @BZavaletaMD
RT @JFreemanDaily: T3. What support resources and services are available for lung cancer patients, caregivers, and families who are **NOT**…
Janet Freeman-Daily @JFreemanDaily
@carlos_rdb97 @Smiles4Nana Carlos, I can provide more support information for your dad's case after the chat is over. My chemobrain is already on overload moderating the chat! #LCSM
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
@JFreemanDaily T1..... access to meds and affordability in Canada, and lack of clinical trials #LCSM
#LCSM Chat @lcsmchat
RT @jmeberth: @lgreco_ny You have good employer insurance? That’s great! I think my findings have to do more with the higher rates of un an…
#LCSM Chat @lcsmchat
RT @lgreco_ny: @JFreemanDaily T3 here I would inquire with local hospital. You might have to ask multiple times. I'm still finding out thin…
Carlos @carlos_rdb97
@JFreemanDaily @Smiles4Nana Thank you very much Janet. #lcsm
#LCSM Chat @lcsmchat
RT @Kamacintosh: @JFreemanDaily T1..... access to meds and affordability in Canada, and lack of clinical trials #LCSM
kristen kimball @KimballKristen
@HenningWillers @Smiles4Nana T1 more opportunities for remote / virtual consult for second opinions? And to guide local community onc? #LCSM
Gia Sonata @RedGia
RT @TimAllenMDJD: Agree. Service lines and patient management teams could help make this happen. #PatientsFirst #LCSM https://t.co/M2SvAEJ…
Jan Marie Eberth @jmeberth
@KimballKristen @HenningWillers @Smiles4Nana Yes! Wish more places did more virtual case management, nodule clinics, etc. #LCSM
Carlos @carlos_rdb97
@Kamacintosh @JFreemanDaily T1 #lcsm I find the lack of clinical trials also a slight problem. I haven't dove deep into it as we haven't started treatments.
Janet Freeman-Daily @JFreemanDaily
#lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a good second opinion, lung cancer specialists near you, and phone buddies who have dealt with lung cancer themselves #LCSM
Matthew Smeltzer @MattSmeltzer
@JFreemanDaily @lcsmchat @RedGia @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter Agree, we need more #lungcancer nurse navigators! #lcsm
kristen kimball @KimballKristen
@lcsmchat @JFreemanDaily Yea holidays are not so jolly... ❤️ #lcsm finally out of that Uber 🤢
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a go…
Henning Willers, MD #StaySafeEveryone @HenningWillers
RT @JFreemanDaily: #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a go…
Tiffini Joseph @Smiles4Nana
@carlos_rdb97 @Kamacintosh @JFreemanDaily I believe @GO2Foundation has a clinical trial matching program. They also have a wealth of support for you and your dad #LCSM
Tiffini Joseph @Smiles4Nana
RT @JFreemanDaily: #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a go…
#LCSM Chat @lcsmchat
RT @KimballKristen: @HenningWillers @Smiles4Nana T1 more opportunities for remote / virtual consult for second opinions? And to guide local…
#LCSM Chat @lcsmchat
RT @jmeberth: @KimballKristen @HenningWillers @Smiles4Nana Yes! Wish more places did more virtual case management, nodule clinics, etc. #LC
#LCSM Chat @lcsmchat
RT @JFreemanDaily: #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a go…
#LCSM Chat @lcsmchat
RT @MattSmeltzer: @JFreemanDaily @lcsmchat @RedGia @HenningWillers @lgreco_ny @Smiles4Nana @MGHCancerCenter Agree, we need more #lungcancer
Timothy Craig Allen @TimAllenMDJD
But we appreciate your moderating it, @JFreemanDaily! You do it so well! #LCSM
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
RT @JFreemanDaily: @HenningWillers Many hospitals offer a link to https://t.co/JaLiJ7d9Ar site for patient blogs--it's a good way to keep f…
Alvaro Carrascal @CarrascalAlvaro
RT @jmeberth: T1. My team recently did 2 studies on financial toxicity in cancer survivors. Younger persons more likely to be impacted... M…
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
RT @JFreemanDaily: T2: #LCSM Chat has compiled an assortment of trusted online #lungcancer resources on a variety of topics from many sourc…
Janet Freeman-Daily @JFreemanDaily
T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with lung cancer experts about questions patients want to ask about common topics. https://t.co/54l1LP0U7v #LCSM
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with…
Gia Sonata @RedGia
RT @jmeberth: T1. My team recently did 2 studies on financial toxicity in cancer survivors. Younger persons more likely to be impacted... M…
Tiffini Joseph @Smiles4Nana
T3 some hospitals have in person support groups. Our local Gildas Club has one for many years, not sure of it is still active #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with…
#LCSM Chat @lcsmchat
RT @Smiles4Nana: T3 some hospitals have in person support groups. Our local Gildas Club has one for many years, not sure of it is still act…
Tiffini Joseph @Smiles4Nana
RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with…
kristen kimball @KimballKristen
@jmeberth @lcsmchat @GO2Foundation @LUNGevity also matches patients or caregivers with mentor pts/survivors and caregivers. #lcsm
Henning Willers, MD #StaySafeEveryone @HenningWillers
RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with…
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with…
#LCSM Chat @lcsmchat
RT @KimballKristen: @jmeberth @lcsmchat @GO2Foundation @LUNGevity also matches patients or caregivers with mentor pts/survivors and caregiv…
Janet Freeman-Daily @JFreemanDaily
T3. Ask your treating doctor if your hospital/clinic has patient navigators--they help you schedule appointments, find resources, and explain details you might have missed the first time through. #LCSM
Laura Greco @lgreco_ny
@jmeberth I personally am not looking forward to Medicare. It will cost me tons more for TKI, when currently paying only $5 a month. Even without pharma assist, I would pay $40/mth. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T3. Ask your treating doctor if your hospital/clinic has patient navigators--they help you schedule appointments, find r…
Gia Sonata @RedGia
RT @JFreemanDaily: #lungcancer advocacy organizations like @LUNGevity and @GO2Foundation have patient navigators who can help you find a go…
Tiffini Joseph @Smiles4Nana
RT @JFreemanDaily: T3. Ask your treating doctor if your hospital/clinic has patient navigators--they help you schedule appointments, find r…
Gina @EAustin1969
I’m here lurking #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3. Ask your treating doctor if your hospital/clinic has patient navigators--they help you schedule appointments, find r…
#LCSM Chat @lcsmchat
RT @lgreco_ny: @jmeberth I personally am not looking forward to Medicare. It will cost me tons more for TKI, when currently paying only $…
Amy Gravell @amy_gravell
RT @NCIprevention: Cigarette, cigar, and pipe smoking all increase the risk of lung cancer. Tobacco smoking causes about 9 out of 10 cases…
Tiffini Joseph @Smiles4Nana
@JFreemanDaily @GO2Foundation Agreed. The support group through Gildas was specific to lung cancer #LCSM
Geri Massa @GeriGerim13
I’m Lurking #lcsm
OurWarOnCancer @OurWarOnCancer
RT @lgreco_ny: Thank you so much @JDayGolf and @Miguelnbc for highlighting a generally overlooked and definitely underfunded disease! I've…
Janet Freeman-Daily @JFreemanDaily
General cancer support groups help with emotional support, but often can't provide info about #lungcancer treatment or side effects. @GO2Foundation maintains a list of #lungcancer in-person groups. @CancerCare has groups too. #LCSM
OurWarOnCancer @OurWarOnCancer
RT @ivybelkins: Fantastic segment on @TODAYshow about #lungcancer and its impact.Thanks so much to both @JDayGolf and @Miguelnbc for sharin…
Matthew Smeltzer @MattSmeltzer
@carlos_rdb97 @Kamacintosh @JFreemanDaily https://t.co/bNfx5btzeL is a great resource #lcsm
Henning Willers, MD #StaySafeEveryone @HenningWillers
RT @JFreemanDaily: General cancer support groups help with emotional support, but often can't provide info about #lungcancer treatment or s…
Gia Sonata @RedGia
@lgreco_ny @jmeberth It took me mo months to pick my first medicare plan this year. Too much angst for here but it's finally a done deal. I'm looking forward to some dx tests I had to hold off on under my previous ins plan due to $$ #lcsm
Tiffini Joseph @Smiles4Nana
RT @JFreemanDaily: General cancer support groups help with emotional support, but often can't provide info about #lungcancer treatment or s…
OurWarOnCancer @OurWarOnCancer
RT @LungProject: We’re hopeful the new year will bring new opportunities for progress in #lungcancer screening and changes in negative atti…
Janet Freeman-Daily @JFreemanDaily
T4. How can organizations and individuals in the lung cancer community help provide supports to lung cancer patients, caregivers, and families? #LCSM
Carlos @carlos_rdb97
@MattSmeltzer @Kamacintosh @JFreemanDaily Will look into this. Thank you very much. #lcsm
Devika Das,MD @DevikaDasMD
@HenningWillers @Smiles4Nana Telemedicine consults for second opinions and try to keep the care closer to the patient so the don’t have to travel for standard of care therapy or clinical trials #lcsm
Janet Freeman-Daily @JFreemanDaily
@MattSmeltzer @carlos_rdb97 @Kamacintosh ...but with all the 100s of #lungcancer trials, it's often tough to find one for which you qualify AND gives you the best chance at effective treatment. Needs a better interface, and patients need oncologist's help sorting through options. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: General cancer support groups help with emotional support, but often can't provide info about #lungcancer treatment or s…
#LCSM Chat @lcsmchat
RT @MattSmeltzer: @carlos_rdb97 @Kamacintosh @JFreemanDaily https://t.co/bNfx5btzeL is a great resource #lcsm
#LCSM Chat @lcsmchat
RT @RedGia: @lgreco_ny @jmeberth It took me mo months to pick my first medicare plan this year. Too much angst for here but it's finally a…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T4. How can organizations and individuals in the lung cancer community help provide supports to lung cancer patients, ca…
Janet Freeman-Daily @JFreemanDaily
@GeriGerim13 We see you, Geri! #lcsm
David Magro @DavidMagro1
RT @JMPhoto5: Today I made it to 5 years #lungcancer free! Please #stopthestigma and encourage anyone with lungs to get checked #LCSM #433a
#LCSM Chat @lcsmchat
RT @DevikaDasMD: @HenningWillers @Smiles4Nana Telemedicine consults for second opinions and try to keep the care closer to the patient so t…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @MattSmeltzer @carlos_rdb97 @Kamacintosh ...but with all the 100s of #lungcancer trials, it's often tough to find one fo…
Angus Pratt 🇨🇦 @anguspratt
#LCSM lurking tonight on the west coast. Lack of local support groups. So glad we have a variety of online support.
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T4. How can organizations and individuals in the lung cancer community help provide supports to lung cancer patients, ca…
#LCSM Chat @lcsmchat
RT @anguspratt: #LCSM lurking tonight on the west coast. Lack of local support groups. So glad we have a variety of online support.
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: General cancer support groups help with emotional support, but often can't provide info about #lungcancer treatment or s…
Janet Freeman-Daily @JFreemanDaily
@DevikaDasMD @HenningWillers @Smiles4Nana Do you know of any #lungcancer treatment clinical trials conducted by telemedicine? I know it's been tried, but no widespread adoption yet. #LCSM
Laura Greco @lgreco_ny
RT @JFreemanDaily: @MattSmeltzer @carlos_rdb97 @Kamacintosh ...but with all the 100s of #lungcancer trials, it's often tough to find one fo…
Carlos @carlos_rdb97
T4 #lcsm I think the best support would be providing patients and caregivers information early on in the diagnosis. It was really tough waiting for that 'phone call' for 2 weeks for the first appointment with almost no info as to what the biomarkers findings are and what not.
Paula Ashton @paulalv
RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @DevikaDasMD @HenningWillers @Smiles4Nana Do you know of any #lungcancer treatment clinical trials conducted by telemedi…
#LCSM Chat @lcsmchat
RT @carlos_rdb97: T4 #lcsm I think the best support would be providing patients and caregivers information early on in the diagnosis. It wa…
Devika Das,MD @DevikaDasMD
@JFreemanDaily @lcsmchat A1 care coordination, delays in work up and access to therapy and lack of clinical trials access closer to home. All leading to financial toxicity and less than ideal care #lcsm
Janet Freeman-Daily @JFreemanDaily
@Kamacintosh @lcsmchat @lgreco_ny Remember to put #lcsm in your tweets so they will appear in the chat.
Tiffini Joseph @Smiles4Nana
T4 I’ve found a great support through social media and working with @GO2Foundation Losing my mom was devastating but surrounding myself w/people who “get it” has really helped with my ongoing grief #LCSM
Laura Greco @lgreco_ny
RT @anguspratt: #LCSM lurking tonight on the west coast. Lack of local support groups. So glad we have a variety of online support.
Gia Sonata @RedGia
@JFreemanDaily T4 It seems like some "helpful services" should be more proactive reaching out to pts in need, but the environment of healthcare in general doesn't support it. If pts keep treading water while reaching out for help & getting through the phone mazes we might get somewhere! #lcsm
Tiffini Joseph @Smiles4Nana
RT @carlos_rdb97: T4 #lcsm I think the best support would be providing patients and caregivers information early on in the diagnosis. It wa…
Timothy Craig Allen @TimAllenMDJD
RT @Smiles4Nana: T4 I’ve found a great support through social media and working with @GO2Foundation Losing my mom was devastating but surr…
#LCSM Chat @lcsmchat
RT @DevikaDasMD: @JFreemanDaily @lcsmchat A1 care coordination, delays in work up and access to therapy and lack of clinical trials access…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @Kamacintosh @lcsmchat @lgreco_ny Remember to put #lcsm in your tweets so they will appear in the chat.
#LCSM Chat @lcsmchat
RT @Smiles4Nana: T4 I’ve found a great support through social media and working with @GO2Foundation Losing my mom was devastating but surr…
Devika Das,MD @DevikaDasMD
@JFreemanDaily @HenningWillers @Smiles4Nana Can’t actually do the trials on telemedicine but definitely could review records, do the screening and talk to the patients to see if they are eligible before having them drive/ fly across the country to be told they are not eligible 😢#lcsm
#LCSM Chat @lcsmchat
RT @RedGia: @JFreemanDaily T4 It seems like some "helpful services" should be more proactive reaching out to pts in need, but the environme…
#LCSM Chat @lcsmchat
RT @DevikaDasMD: @JFreemanDaily @HenningWillers @Smiles4Nana Can’t actually do the trials on telemedicine but definitely could review recor…
Timothy Craig Allen @TimAllenMDJD
#PatientsFirst #LCSM
Tiffini Joseph @Smiles4Nana
RT @DevikaDasMD: @JFreemanDaily @HenningWillers @Smiles4Nana Can’t actually do the trials on telemedicine but definitely could review recor…
Jan's way @JanCloward1
RT @TestLungCancer: When Dening Day, mom of PGA golf champion Jason Day, found out she had #lungcancer, she had questions and they were det…
Charu Aggarwal, MD, MPH @CharuAggarwalMD
@JFreemanDaily T4. By providing education and access. There are so many ways in which we provide information to pts and caregivers. "Access" is HUGE - just simply connecting a pt to a clinical trial at another institution, or connecting them to a support group may make a big difference. #LCSM
Janet Freeman-Daily @JFreemanDaily
I got a bit behind replying to tweets! (BAD moderator) We’re in our final minutes - closing thoughts? #LCSM
#LCSM Chat @lcsmchat
RT @CharuAggarwalMD: @JFreemanDaily T4. By providing education and access. There are so many ways in which we provide information to pts an…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: I got a bit behind replying to tweets! (BAD moderator) We’re in our final minutes - closing thoughts? #LCSM
#LCSM Chat @lcsmchat
@JFreemanDaily Thank you for moderating this evening, Janet. #lcsm
Devika Das,MD @DevikaDasMD
@JFreemanDaily @lcsmchat T2 Resources are not equitable across the country. My state ( alabama ) has very little help for #lcsm patients. This has got to change
#LCSM Chat @lcsmchat
RT @DevikaDasMD: @JFreemanDaily @lcsmchat T2 Resources are not equitable across the country. My state ( alabama ) has very little help for…
Lydia Christina @prettypvalue
RT @jmeberth: T1. My team recently did 2 studies on financial toxicity in cancer survivors. Younger persons more likely to be impacted... M…
Henning Willers, MD #StaySafeEveryone @HenningWillers
@JFreemanDaily An hour well spent 🙏 #lcsm
Tiffini Joseph @Smiles4Nana
T4 I also think follow up is so important. Be proactive in reaching out to friends/family that are dealing with a cancer dx. You don’t know what you need and probably won’t be the one to make the 1st call #LCSM
kristen kimball @KimballKristen
@Smiles4Nana @GO2Foundation I agree - honestly this community serves the support function for me better than my grief group, which I like and which is run by a competent therapist. But my virtual LC family REALLY gets lung cancer and the devastation it wreaks upon pt & family #lcsm
Janet Freeman-Daily @JFreemanDaily
@CharuAggarwalMD Physicians need a more efficient way to find clinical trials at other institutions for which their patient is eligible. Right now, it's mostly up to the patients to find a trial. How can we judge what treatment has the best chance of working? #LCSM
MDedge Hematology & Oncology @MDedgeHemOnc
RTOG 0617 trial finds that more is not better when it comes to radiation therapy administered with concurrent chemo in #NSCLC. https://t.co/E2L9xc1EXX #lcsm https://t.co/vFmKI3qEGh
Carlos @carlos_rdb97
#lcsm I would just like to thank everyone in this community. My Dad was just recently diagnosed and this was my first #lcsm chat. It's a good feeling to be in a setting with people that are going or have gone through this experience. Thank you again everyone.
Tiffini Joseph @Smiles4Nana
@KimballKristen @GO2Foundation I completely agree. The best thing lung cancer has done for me is give me a second “family” #lcsm
Laura Greco @lgreco_ny
RT @JFreemanDaily: @CharuAggarwalMD Physicians need a more efficient way to find clinical trials at other institutions for which their pati…
kristen kimball @KimballKristen
@JFreemanDaily GOOD moderator! Thank you everyone. #lcsm
Carlos @carlos_rdb97
#lcsm and thank you @JFreemanDaily for moderating the event.
Charu Aggarwal, MD, MPH @CharuAggarwalMD
@JFreemanDaily Yes! With hundreds of trials, it is often tough- even for physicians to come up with a trial recommendation without investing some time. #LCSM
Timothy Craig Allen @TimAllenMDJD
When it comes to our lung cancer patients and families, we have more to do. Telemedicine and other new tech can help and should be better used. And coordinating the patient's visit for the convenience of the patient should become the priority. #LCSM
Devika Das,MD @DevikaDasMD
@JFreemanDaily @lcsmchat T4 Easy navigation websites and materials with resources. Massive media campaign and support so patients and are givers can have gas cards, rides, free/ cheap hotel stay, meals, copay help and caregiver support #lcsm
Janet Freeman-Daily @JFreemanDaily
Thanks for joining tonight's #LCSM Chat on "Ways to support #lungcancer patients and caregivers." Pls join us for our next chat on Feb 6, 2020: "Dealing with Lung Cancer Stigma and Nihilism" (moderated by @BrendonStilesMD). Happy 2020!
Dr. David Tom Cooke @DavidCookeMD
RT @JFreemanDaily: Thanks for joining tonight's #LCSM Chat on "Ways to support #lungcancer patients and caregivers." Pls join us for our ne…
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: @CharuAggarwalMD Physicians need a more efficient way to find clinical trials at other institutions for which their pati…
Tiffini Joseph @Smiles4Nana
Thank you @JFreemanDaily for moderating. I’m so happy I was able to participate tonight 😊 #LCSM
Benjamin King, MD @BenjaminKingMD1
Thank you all for a great discussion to stimulate ideas and improve all facets of #lungcancer care! #lcsm
Tiffini Joseph @Smiles4Nana
RT @JFreemanDaily: Thanks for joining tonight's #LCSM Chat on "Ways to support #lungcancer patients and caregivers." Pls join us for our ne…
Janet Freeman-Daily @JFreemanDaily
@carlos_rdb97 The feeling of community with others who understand the #lungcancer experience is one of the best parts of #LCSM Chat!
Tiffini Joseph @Smiles4Nana
RT @JFreemanDaily: @carlos_rdb97 The feeling of community with others who understand the #lungcancer experience is one of the best parts of…
Devika Das,MD @DevikaDasMD
RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with…
Timothy Craig Allen @TimAllenMDJD
Thank you for moderating, @JFreemanDaily. It has been a privilege to participate. #LCSM
Henning Willers, MD #StaySafeEveryone @HenningWillers
@MDedgeHemOnc An alternative interpretation is that a higher dose of #radiotherapy should not be delivered with the techniques and normal tissue constraints used in that trial. It is very possible to deliver a higher dose safely and it may indeed be better. We need data. @MGHThoracicOnc #lcsm
Katsuaki Maehara Ph.D. 🇯🇵 @KatsuakiMaehara
Efficacy of Platinum/Pemetrexed Combination Chemotherapy in ALK-Positive NSCLC Refractory to Alectinib & Ceritinib … Second generation TKIs. #LCSM@IASLC⁩ ⁦@JTOonlinehttps://t.co/xV6cy47Kxu
Henning Willers, MD #StaySafeEveryone @HenningWillers
RT @JFreemanDaily: @carlos_rdb97 The feeling of community with others who understand the #lungcancer experience is one of the best parts of…
Henning Willers, MD #StaySafeEveryone @HenningWillers
RT @JFreemanDaily: Thanks for joining tonight's #LCSM Chat on "Ways to support #lungcancer patients and caregivers." Pls join us for our ne…
kristen kimball @KimballKristen
RT @JFreemanDaily: @carlos_rdb97 The feeling of community with others who understand the #lungcancer experience is one of the best parts of…
Dr. Matthew Schabath @MatthewSchabath
The latest issue of 'Science, Society, and Sports'! https://t.co/2V1I7PHAOh Thanks to @Sarahrain68 @witfnews @wibuusa #lcsm #lungcancer
Dr. Matthew Schabath @MatthewSchabath
'Unprecedented' Drop in US Cancer Deaths, Driven by Lung Cancer https://t.co/tZRARxC0mu #lcsm
Katsuaki Maehara Ph.D. 🇯🇵 @KatsuakiMaehara
RT @ivybelkins: Fantastic segment on @TODAYshow about #lungcancer and its impact.Thanks so much to both @JDayGolf and @Miguelnbc for sharin…
Gia Sonata @RedGia
RT @TimAllenMDJD: #PatientsFirst #LCSM https://t.co/ieM7U6b4LE
Janet Freeman-Daily @JFreemanDaily
@carlos_rdb97 Hope #LCSM Chat gave you several new resources to check out. Do you have any other questions for me?
#LCSM Chat @lcsmchat
RT @Smiles4Nana: T4 I also think follow up is so important. Be proactive in reaching out to friends/family that are dealing with a cancer d…
#LCSM Chat @lcsmchat
RT @KimballKristen: @Smiles4Nana @GO2Foundation I agree - honestly this community serves the support function for me better than my grief g…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @CharuAggarwalMD Physicians need a more efficient way to find clinical trials at other institutions for which their pati…
#LCSM Chat @lcsmchat
RT @carlos_rdb97: #lcsm I would just like to thank everyone in this community. My Dad was just recently diagnosed and this was my first #lc
#LCSM Chat @lcsmchat
RT @Smiles4Nana: @KimballKristen @GO2Foundation I completely agree. The best thing lung cancer has done for me is give me a second “family”…
Janet Freeman-Daily @JFreemanDaily
@HenningWillers Thanks! Hope you'll join us again! #lcsm
Jan Marie Eberth @jmeberth
Those of you interested in rural health issues in cancer, follow @RMHRC_UofSC, where we share many more scientific papers, tools and other resources. #LCSM
Sarah Elizabeth @saraheliz1
RT @LungCancerFaces: I try to keep this account as non-political as possible, however, I find this tweet offensive. @realDonaldTrump has ha…
Devika Das,MD @DevikaDasMD
@JFreemanDaily @IshwariaMD Talking more about treatment toxicity and coping mechanisms is critical. Specially with oral chemotherapy. We have a oral chemo clinic where our diligent pharmacist @PharmBarbara does phone and in person visits to check in #lcsm
Jan Marie Eberth @jmeberth
@JFreemanDaily, enjoyed this chat as always!! #LCSM Thanks to my lung cancer community. https://t.co/8Ha2j2oFzI
Gia Sonata @RedGia
RT @JFreemanDaily: T3. @lcfamerica has a great page on their site called "Hope with Answers"--lung cancer patients talking one-on-one with…
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