#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Janet Freeman-Daily @JFreemanDaily Welcome to Open Mic Night on #LCSM Chat! |
 | Denise Cutlip @dennycee Good evening all. Michigan in the house. #lcsm |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to Open Mic Night on #LCSM Chat! |
| Janet Freeman-Daily @JFreemanDaily Denzie! So glad you joined the chat. It was looking like it would be the Deana and Janet Comedy hour for a second there... #lcsm |
 | Faces of Lung Cancer 🇺🇦 @LungCancerFaces @dennycee Hey you! #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces Deana Hendrickson in Los Angeles here. #lcsm |
 | Nancy Marquina @Nmarquina80 Hello everyone! #LCSM |
 | These Are My Scars @TheseAreMyScars Hey everyone, Toronto in the House. So happy to finally be free!! #LCSM |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist, owned by two cats #LCSM |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @Nmarquina80 Hi Nancy! I'm still angry about the Kaiser Tarceva surcharge. #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @TheseAreMyScars I'm so glad, too! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist, owned by two cats #LCSM |
| Janet Freeman-Daily @JFreemanDaily Welcome @Nmarquina80 and @TheseAreMyScars! Now we are five. #lcsm |
 | Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist, owned by two cats #LCSM |
| Upstage Lung Cancer @UpstageLungCanc Good evening, #LCSM friends! |
| Denise Cutlip @dennycee ! So glad you joined the chat. It was looking like it would be the Deana and Janet Comedy hour for a second there... #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @UpstageLungCanc Hello, lady. #lcsm |
 | Deb Smith 🌻 @debsmithbeach Hi, Deb from chilly NH here. Today, I went to see @1111linno at her art show opening! She's amazing in so many ways! #LCSM https://t.co/YDe3t6uVOs |
 | It's me! @JohnLPender Anyone else using TweetChat? It's not showing all the tweets. #lcsm |
 | Lung Cancer Halflung (K Latzka) @LungCancerHalfL I’m here...for now 😃 #LCSM |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @JohnLPender Try https://t.co/3LPtQs2zFu #lcsm |
| Janet Freeman-Daily @JFreemanDaily Hiya @UpstageLungCanc and @JohnLPender! #lcsm |
 | Charles Ricordel @C_Ricordel RT @DrRiyazShah: Besse thoughts on subgroups who may not benefit from IO #BTOG2018 #LCSM https://t.co/wM9IGFF3Jj |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @LungCancerHawai Hi K! Thanks for the advice earlier. It works! #lcsm |
| Janet Freeman-Daily @JFreemanDaily Hey K! @LungCancerHawai #lcsm |
 | Danielle Pardue @Actorielle Helllllllo friends! Just finishing dinner: taco Tuesday means leftover taco Thursday! Lol! #LCSM |
 | H. Jack West, MD @JackWestMD Hi, folks! I hope my #LCSM friends are doing well. |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @JackWestMD Whoa, it's Jack! #lcsm |
| It's me! @JohnLPender @LungCancerFaces Switching now... #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD! Good to see you. Back from your travels? #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @Actorielle Hi Danielle! How's married life treating you? #lcsm |
| Janet Freeman-Daily @JFreemanDaily If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 Welcome Mary! We're a friendly bunch. #lcsm |
| H. Jack West, MD @JackWestMD Between travels. Heading to a mtg next week (Maui). RT @JFreemanDaily: @JackWestMD! Good to see you. Back from your travels? #lcsm |
 | Steve Holderness @dark_hawk_98 The Ozarks of Arkansas are now represented. woot woot. LOL #lcsm |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @debsmithbeach @1111linno Hi Deb! What a fabulous pic! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD |
| Janet Freeman-Daily @JFreemanDaily @dark_hawk_98 Welcome to the Ozarks! #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @dark_hawk_98 Hey Steve! Represent! #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @mschroeder3 Welcome, Mary! #lcsm |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. BUT feel free to chime in--we don't bite. #lcsm |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD With you in spirit, #lcsm Will try hard to finish up and join! #goteam #PatientsFirst https://t.co/TXF5O5hWi6 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD |
 | Marcy @Marcy65412751 Hello I am new to this chat! @Actorielle told me about it. My dad has had nscl for 7.5 years (squamous cell). Nice to meet all of you. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. BUT feel free to chime in--we don't bite. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL @JackWestMD @JFreemanDaily Can I hide in your luggage? Miss Hawaii bunches #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. BUT feel free to chime in--we don't bite. #lcsm |
| Deb Smith 🌻 @debsmithbeach @LungCancerFaces @1111linno Linnea's son Peter was the photographer! #LCSM |
| Danielle Pardue @Actorielle @Marcy65412751 So happy you are here, my friend! #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @TimAllenMDJD A big new job can be demanding. Work it! #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @Marcy65412751 Hi Marcy! Welcome. #lcsm |
| Janet Freeman-Daily @JFreemanDaily We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #LCSM |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @debsmithbeach How wonderful! #lcsm |
| H. Jack West, MD @JackWestMD Will sent Hawaii your regards... RT @LungCancerHawai: @JackWestMD @JFreemanDaily Can I hide in your luggage? Miss Hawaii bunches #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #LCSM |
| Janet Freeman-Daily @JFreemanDaily We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm |
 | Geri Massa @GeriGerim13 Hello y’all ... #LCSM https://t.co/3aUvNcWk1F |
| Janet Freeman-Daily @JFreemanDaily Hey @JackWestMD, send me some ocean wave sound effects ... for @LungCancerHawai too! #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces So glad we found each other. Remember to add #LCSM to your tweets so everyone can pick them up during the chat. xo https://t.co/btsymjyxsh |
| These Are My Scars @TheseAreMyScars Q what is in the pipeline after the current second and third gen ALK TKIs? #LCSM |
| Janet Freeman-Daily @JFreemanDaily Hi @GeriGerim13 ! #lcsm |
| Denise Cutlip @dennycee Who will be at the FtB Lung Cancer Leadership Conference in Feb? #lcsm |
| Janet Freeman-Daily @JFreemanDaily For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm |
| H. Jack West, MD @JackWestMD There's an Alexa skill for that. Nice to fall asleep to. RT @JFreemanDaily: Hey @JackWestMD, send me some ocean wave sound effects #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #LCSM |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @dennycee I didn't know about it. Tell us. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @dennycee Didn't realize Free to Breathe had a Lung Cancer Leadership Conference in February. Links? #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: For instance: For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: So glad we found each other. Remember to add #LCSM to your tweets so everyone can pick them up during the chat. xo https://t.co/btsymjyxsh |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: Q what is in the pipeline after the current second and third gen ALK TKIs? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: For instance: For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD I listen to "ocean waves" via Alexa every night at bedtime. But Hawaii IRL sounds different. #lcsm |
 | Paula Ashton @paulalv @dennycee Hi Denise, I believe Lysa is going #lcsm |
| It's me! @JohnLPender @JackWestMD @JFreemanDaily I wonder if she has a white noise skill. Sure would help me at certain times. #lcsm |
| H. Jack West, MD @JackWestMD Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights every 1-2 mo #lcsm |
| Denise Cutlip @dennycee @JFreemanDaily @dennycee https://t.co/ubpCYWC1sS #lcsm |
| Deb Smith 🌻 @debsmithbeach I'd like to know about new research, especially related to EGFR/T7-90. #LCSM |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @JohnLPender I like recordings of being on a train. Relaxes me. Go figure. @JackWestMD @JFreemanDaily #lcsm |
 | Team Draft @teamdraft Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScreening #LCSM https://t.co/cjjcQ17plT |
| Denise Cutlip @dennycee RT @paulalv: @dennycee Hi Denise, I believe Lysa is going #lcsm. Yeah, Anita is too. #lcsm |
| Danielle Pardue @Actorielle RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights every 1-2 mo #lcsm |
| Janet Freeman-Daily @JFreemanDaily Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #lcsm |
| #LCSM Chat @lcsmchat RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights every 1-2 mo #lcsm |
| #LCSM Chat @lcsmchat RT @debsmithbeach: I'd like to know about new research, especially related to EGFR/T7-90. #LCSM |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @mschroeder3 Remind me. Did I send you some resource links to get you started? #lcsm |
| Danielle Pardue @Actorielle @JackWestMD Thank you for saying this. As much as I try to be "hypothetical," I can't deny that this is where my interests lie as well (mom was on an #Avelumab trial for about 28 mos and stopped voluntarily last May for moderate irAEs). #lcsm |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm |
| Denise Cutlip @dennycee @mschroeder3 best is to get a 2d opinion at NCI designated hospital. Has she started treatment? #lcsm |
| Danielle Pardue @Actorielle RT @debsmithbeach: I'd like to know about new research, especially related to EGFR/T7-90. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Re pipeline for ALK TKIs: Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #lcsm |
| Marcy @Marcy65412751 Does anybody suffer from lymphedema as a result of their #lungcancer treatments ? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Re pipeline for ALK TKIs: Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #lcsm |
| Janet Freeman-Daily @JFreemanDaily @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm |
| These Are My Scars @TheseAreMyScars Q- do you happen to know if they are using the chemo in conjunction with the TKIs, or stopping the TKI and doing a few cycles of infusion? Is IO thrown into the mix at all? #lcsm https://t.co/0l0o2ooq9r |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm |
| #LCSM Chat @lcsmchat RT @Marcy65412751: Does anybody suffer from lymphedema as a result of their #lungcancer treatments ? #LCSM |
| Geri Massa @GeriGerim13 Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @debsmithbeach re EGFR/T790M: @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm |
| H. Jack West, MD @JackWestMD Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Like to know research re: EGFR/T790. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @debsmithbeach re EGFR/T790M: @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm |
| Danielle Pardue @Actorielle RT @GeriGerim13: Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM |
| Denise Cutlip @dennycee @Marcy65412751 I’ve a phone buddy who does. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @Marcy65412751 Not to many #lungcancer patients have arm lymph nodes removed, so lymphedema isn't too common. Confirm @JackWestMD? #lcsm |
| Danielle Pardue @Actorielle RT @JackWestMD: Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Like to know research re: EGFR/T790. #lcsm |
| #LCSM Chat @lcsmchat .@GaleGordon19 asks: I see that some egfr patients on this go many years without resistance developing. Why does no one study them to see if there is something there that might help others? #lcsm |
| These Are My Scars @TheseAreMyScars Yes! I cut out salt and high sodium foods, used compression socks. #lcsm Do you know if it’s medication related or surgically related from the removal of lymph nodes? #lcsm https://t.co/SL6gHhLKST |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: Q- do you happen to know if they are using the chemo in conjunction with the TKIs, or stopping the TKI and doing a few cycles of infusion? Is IO thrown into the mix at all? #lcsm https://t.co/0l0o2ooq9r |
| Danielle Pardue @Actorielle Yeah--genetic testing is always in the background of my mind as well. Several cases of LC in my family and my husband's family. #LCSM |
| #LCSM Chat @lcsmchat RT @GeriGerim13: Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM |
| H. Jack West, MD @JackWestMD Yup. RT @JFreemanDaily: @Marcy65412751 Not many LC pts have arm lymph nodes removed, so lymphedema isn't common. Confirm @JackWestMD? #lcsm |
| Deb Smith 🌻 @debsmithbeach @JackWestMD Happy to know there are options. I've been on Tagrisso since 10/13, first in a trial @DanaFarber. #LCSM |
| #LCSM Chat @lcsmchat RT @JackWestMD: Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Like to know research re: EGFR/T790. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Marcy65412751 Not to many #lungcancer patients have arm lymph nodes removed, so lymphedema isn't too common. Confirm @JackWestMD? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @TheseAreMyScars Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chemo. Immunotherapy is more of a "hail Mary" (last resort) for those on TKIs . #LCSM |
 | Gale Gordon @GaleGordon19 @JFreemanDaily @JackWestMD Hi Why does no one seem interested in studying TKI SUPER RESPONDERS ? Might they not hold a clue that would help others? #LCSM |
| Danielle Pardue @Actorielle RT @JackWestMD: Yup. RT @JFreemanDaily: Yup. RT @JFreemanDaily: @Marcy65412751 Not many LC pts have arm lymph nodes removed, so lymphedema isn't common. Confirm @JackWestMD? #lcsm |
| Deb Smith 🌻 @debsmithbeach @JFreemanDaily I've been reading about these and look forward to when they're in regular use. I used to faint when I had a shot, now having blood work, having port accessed, seem benign! #LCSM |
| These Are My Scars @TheseAreMyScars Let me rephrase, not lymphedema, but edema yes. While on one of my medications, my legs and hands would swell on a regular basis. #lcsm https://t.co/SL6gHhLKST |
| H. Jack West, MD @JackWestMD @debsmithbeach if any place is likely to have novel trial option after progress'n on osimertinib (Tagrisso), it's @DanaFarber (or MGH) #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces Here you go. Some suggestions for newly diagnosed: https://t.co/72ADIdcKMX… and https://t.co/OTTE7hig0b and https://t.co/YecrZSPxKi… and https://t.co/wcBav23gJN… Anything else to suggest #LCSM? https://t.co/QBtHHVUvld |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @TheseAreMyScars Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chemo. Immunotherapy is more of a "hail Mary" (last resort) for those on TKIs . #LCSM |
 | Inspire @teaminspire RT @ivybelkins: Thanks for sharing my lung cancer story @UChicagoMed @UChicagoMed. I’m alive today because of recent strides in lung cancer research and excellent medical care by @JPatelMD! @EGFRResisters @LUNGevity #LCSM https://t.co/S8e4gXNWUA https://t.co/piKFsftj0j |
| It's me! @JohnLPender So who still eats a crappy diet? Because I sure haven't stopped. #lcsm |
| Denise Cutlip @dennycee @JackWestMD asking for a friend-can a lung tumor be ablated under a local? #lcsm |
| Janet Freeman-Daily @JFreemanDaily For the newbies among us, remember to include "#lcsm" in ALL your tweets -- if you don't we won't see your tweets in this chat #lcsm |
| Danielle Pardue @Actorielle RT @JackWestMD: @debsmithbeach if any place is likely to have novel trial option after progress'n on osimertinib (Tagrisso), it's @DanaFarber (or MGH) #lcsm |
| #LCSM Chat @lcsmchat RT @GaleGordon19: @JFreemanDaily @JackWestMD Hi Why does no one seem interested in studying TKI SUPER RESPONDERS ? Might they not hold a clue that would help others? #LCSM |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: Yes! I cut out salt and high sodium foods, used compression socks. #lcsm Do you know if it’s medication related or surgically related from the removal of lymph nodes? #lcsm https://t.co/SL6gHhLKST |
| #LCSM Chat @lcsmchat RT @JackWestMD: Yup. RT @JFreemanDaily: Yup. RT @JFreemanDaily: @Marcy65412751 Not many LC pts have arm lymph nodes removed, so lymphedema isn't common. Confirm @JackWestMD? #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: Yeah--genetic testing is always in the background of my mind as well. Several cases of LC in my family and my husband's family. #LCSM |
| #LCSM Chat @lcsmchat RT @debsmithbeach: @JackWestMD Happy to know there are options. I've been on Tagrisso since 10/13, first in a trial @DanaFarber. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TheseAreMyScars Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chemo. Immunotherapy is more of a "hail Mary" (last resort) for those on TKIs . #LCSM |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: Let me rephrase, not lymphedema, but edema yes. While on one of my medications, my legs and hands would swell on a regular basis. #lcsm https://t.co/SL6gHhLKST |
| Danielle Pardue @Actorielle RT @LungCancerFaces: Here you go. Some suggestions for newly diagnosed: Here you go. Some suggestions for newly diagnosed: https://t.co/72ADIdcKMX… and https://t.co/OTTE7hig0b and https://t.co/YecrZSPxKi… and https://t.co/wcBav23gJN… Anything else to suggest #LCSM? https://t.co/QBtHHVUvld |
| These Are My Scars @TheseAreMyScars @JFreemanDaily Thank you :) that’s what I’ve heard as well re: IO #lcsm |
| #LCSM Chat @lcsmchat RT @JackWestMD: @debsmithbeach if any place is likely to have novel trial option after progress'n on osimertinib (Tagrisso), it's @DanaFarber (or MGH) #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Here you go. Some suggestions for newly diagnosed: Here you go. Some suggestions for newly diagnosed: https://t.co/72ADIdcKMX… and https://t.co/OTTE7hig0b and https://t.co/YecrZSPxKi… and https://t.co/wcBav23gJN… Anything else to suggest #LCSM? https://t.co/QBtHHVUvld |
| #LCSM Chat @lcsmchat RT @dennycee: @JackWestMD asking for a friend-can a lung tumor be ablated under a local? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: For the newbies among us, remember to include "#lcsm" in ALL your tweets -- if you don't we won't see your tweets in this chat #lcsm |
| H. Jack West, MD @JackWestMD Rarely done. If just one spot to treat, usually do radiation. MT @dennycee: @JackWestMD -can a lung tumor be ablated under a local? #lcsm |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL I’m newly dx alpha-1 antitrypsin disorder. So I’m a little preoccupied with how this #halflung #hiker will keep up over the next 20 years 😢 #LCSM |
 | Darrell Polk 1 @polksbc1 RT @teamdraft: Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScreening #LCSM https://t.co/cjjcQ17plT |
| Darrell Polk 1 @polksbc1 RT @teamdraft: It’s go time! @pattypoolqueen1 @Delta heading down to #ProBowl #Orlando @WinshipAtEmory #2018SuperBowlChallenge #tacklinglungcancer #LCSM https://t.co/0Uz3e9mBGM |
| Denise Cutlip @dennycee @JackWestMD @dennycee Thx-she’s maxed on radiation. #lcsm |
| Marcy @Marcy65412751 @JFreemanDaily @JackWestMD Oh okay... well he’s had it for over a year and they’re saying it could have been caused by radiation he received to his neck area (spread to lymph nodes) but the swelling is going down. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just try to listen to their concerns and let them know they are not alone. #LCSM |
| #LCSM Chat @lcsmchat RT @JackWestMD: Rarely done. If just one spot to treat, usually do radiation. MT @dennycee: Rarely done. If just one spot to treat, usually do radiation. MT @dennycee: @JackWestMD -can a lung tumor be ablated under a local? #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerHawai: I’m newly dx alpha-1 antitrypsin disorder. So I’m a little preoccupied with how this #halflung #hiker will keep up over the next 20 years 😢 #LCSM |
| H. Jack West, MD @JackWestMD Great to hear. Few w/longer history! MT @debsmithbeach: @JackWestMD I've been on Tagrisso since 10/13, first in a trial @DanaFarber. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @GaleGordon19 @JackWestMD Help me out --- What do you mean by "TKI Super Responder"? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just try to listen to their concerns and let them know they are not alone. #LCSM |
| H. Jack West, MD @JackWestMD Suspect not a good idea, I'm afraid. Even if someone would. RT @dennycee: @JackWestMD @dennycee Thx-she’s maxed on radiation. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @debsmithbeach Ports sure make life easy for scans and blood draws, don't they? #LCSM |
| Paula Ashton @paulalv @mschroeder3 Not everyone wants to talk about it. I would simply offer to listen if she needs to talk #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm |
| Janet Freeman-Daily @JFreemanDaily @Marcy65412751 @JackWestMD Sounds like he had radiation to lymph nodes--that could cause lymphedema. #LCSM |
| Deb Smith 🌻 @debsmithbeach @JFreemanDaily Yes! I do have to look the other way though.... #LCSM |
| Danielle Pardue @Actorielle RT @LungCancerFaces: Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @debsmithbeach Ports sure make life easy for scans and blood draws, don't they? #LCSM |
| Janet Freeman-Daily @JFreemanDaily @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-ROS1 trial, 5 yrs No Evidence of Disease. My stats are being tracked by the trial. #LCSM |
| #LCSM Chat @lcsmchat RT @paulalv: @mschroeder3 Not everyone wants to talk about it. I would simply offer to listen if she needs to talk #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm |
 | Jim Bordeaux @JBordeaux9 Better late than never! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-ROS1 trial, 5 yrs No Evidence of Disease. My stats are being tracked by the trial. #LCSM |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @JBordeaux9 Hey Jim! #lcsm |
| H. Jack West, MD @JackWestMD Pt w/ (long) complete or near complete response. MT @JFreemanDaily: @GaleGordon19 @JackWestMD What do you mean "TKI Super Responder"? #LCSM |
| These Are My Scars @TheseAreMyScars I loooove my port!! I highly recommend getting one if you are going to be on long term treatment. Makes CTs and blood draws so easy! #lcsm https://t.co/256ad3zEI9 |
 | Allison Smith @FalconAlley RT @teamdraft: Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScreening #LCSM https://t.co/cjjcQ17plT |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-ROS1 trial, 5 yrs No Evidence of Disease. My stats are being tracked by the trial. #LCSM |
| #LCSM Chat @lcsmchat RT @JackWestMD: Pt w/ (long) complete or near complete response. MT @JFreemanDaily: Pt w/ (long) complete or near complete response. MT @JFreemanDaily: @GaleGordon19 @JackWestMD What do you mean "TKI Super Responder"? #LCSM |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: I loooove my port!! I highly recommend getting one if you are going to be on long term treatment. Makes CTs and blood draws so easy! #lcsm https://t.co/256ad3zEI9 |
| Janet Freeman-Daily @JFreemanDaily @JohnLPender Now that I've been around over 6.5 years, and NED for over 5, I'm having to start eating healthy so I don't develop OTHER health problems on top of cancer! #LCSM |
| Jim Bordeaux @JBordeaux9 @LungCancerFaces @JBordeaux9 open mic tonight? #lcsm |
| Deb Smith 🌻 @debsmithbeach @mschroeder3 @LungCancerFaces I've also found the American Lung Association and their LungForce program helpful. #LCSM |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @JBordeaux9 Yep. Ask away. Or bring up a topic. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @JohnLPender Now that I've been around over 6.5 years, and NED for over 5, I'm having to start eating healthy so I don't develop OTHER health problems on top of cancer! #LCSM |
| Janet Freeman-Daily @JFreemanDaily @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one right now (inherited EGFR T790M), and it's rare. #LCSM |
| These Are My Scars @TheseAreMyScars I have also been called a super responder, 5yrs on Crizo and almost 2 on Lorlatinib. Consequently I have also gained a heck of a lot of weight, I have heard it may be connected. Myth? #LCSM |
| Marcy @Marcy65412751 Do you guys know of anyone who went back on the same treatment after many years ? My dad may go back on something he took about 4 years ago. I know resistance develops but if it’s been many years since he took it is it still worth a shot? #lcsm |
| Nancy Marquina @Nmarquina80 My dad is about to have his 2yr. Cancerversary in Feb. He’s been on #Terceva all this time. #survivor #lcsm |
 | Dave Bjork @bjork5 So sorry I’m late. Hey everyone from Boston! #lcsm |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/JgOiXNlm37 |
| Danielle Pardue @Actorielle @JFreemanDaily Yeah, for sure. Thank you so much! My maternal gma and my mom both had the same super rare subtype. I feel somewhat "cross-haired," lol. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @kscoon Be sure to include #LCSM in your tweets so everyone can see what you're saying |
| #LCSM Chat @lcsmchat RT @Nmarquina80: My dad is about to have his 2yr. Cancerversary in Feb. He’s been on #Terceva all this time. #survivor #lcsm |
| #LCSM Chat @lcsmchat RT @Marcy65412751: Do you guys know of anyone who went back on the same treatment after many years ? My dad may go back on something he took about 4 years ago. I know resistance develops but if it’s been many years since he took it is it still worth a shot? #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: I have also been called a super responder, 5yrs on Crizo and almost 2 on Lorlatinib. Consequently I have also gained a heck of a lot of weight, I have heard it may be connected. Myth? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one right now (inherited EGFR T790M), and it's rare. #LCSM |
| These Are My Scars @TheseAreMyScars @kscoon it’s so good to see you lovely lady 😘 #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @kscoon Be sure to include #LCSM in your tweets so everyone can see what you're saying |
| Dave Bjork @bjork5 RT @JFreemanDaily: @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just try to listen to their concerns and let them know they are not alone. #LCSM |
| H. Jack West, MD @JackWestMD There are many variables. I think the biggest are the "tumor burden" & the underlying aggressiveness of the dzs. Pts w/small amt & slow-growing cancer can go eons before it develops resistance to EGFR TKIs. But not a variable we can control. #LCSM https://t.co/6Y9bBBAGAr |
| Janet Freeman-Daily @JFreemanDaily Some trials do subgroup analysis to find why certain groups respond really well. That's how we learned ALK+ patients responded well to crizotinib. #LCSM https://t.co/eFrIAfYrgu |
| #LCSM Chat @lcsmchat RT @JackWestMD: There are many variables. I think the biggest are the "tumor burden" & the underlying aggressiveness of the dzs. Pts w/small amt & slow-growing cancer can go eons before it develops resistance to EGFR TKIs. But not a variable we can control. #LCSM https://t.co/6Y9bBBAGAr |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Some trials do subgroup analysis to find why certain groups respond really well. That's how we learned ALK+ patients responded well to crizotinib. #LCSM https://t.co/eFrIAfYrgu |
| Janet Freeman-Daily @JFreemanDaily @bjork5 Hey Dave! Nice to see you. #lcsm |
| Geri Massa @GeriGerim13 My Dr sugg. I go to Genecist. I had in right lung, then 6 months Later L lung. He believes 2 Primary Cancer, if so, not the norm #LCSM |
| Janet Freeman-Daily @JFreemanDaily OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL @mschroeder3 Docs searched on my behalf. That was 8 yrs ago and low chance of Sq LC trials. Ended up on “traditional“ platinum chemo #lcsm |
| Janet Freeman-Daily @JFreemanDaily @Kathleen371215 @CathyToohey #LCSM stands for Lung Cancer Social Media. We're having a tweetchat right now. Join us! |
| Dave Bjork @bjork5 @JFreemanDaily Hi Janet. It’s been a while. But I’ve been following your journey on FB 😊 #LCSM |
| These Are My Scars @TheseAreMyScars @Kathleen371215 @CathyToohey Lung Cancer Social Media I believe #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @Kathleen371215 @CathyToohey #LCSM is a hashtag that stands for Lung Cancer Social Media. It gives lung cancer people a way to connect. |
| Janet Freeman-Daily @JFreemanDaily @Nmarquina80 Congrats to your dad! Hope Tarceva keeps working a loooooong time for him. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Kathleen371215 @CathyToohey #LCSM stands for Lung Cancer Social Media. We're having a tweetchat right now. Join us! |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerHawai: @mschroeder3 Docs searched on my behalf. That was 8 yrs ago and low chance of Sq LC trials. Ended up on “traditional“ platinum chemo #lcsm |
| Danielle Pardue @Actorielle RT @LungCancerFaces: @Kathleen371215 @CathyToohey #LCSM is a hashtag that stands for Lung Cancer Social Media. It gives lung cancer people a way to connect. |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: @Kathleen371215 @CathyToohey #LCSM is a hashtag that stands for Lung Cancer Social Media. It gives lung cancer people a way to connect. |
| Deb Smith 🌻 @debsmithbeach @JFreemanDaily @GaleGordon19 @JackWestMD I was on a trial (for AZD9291/Tagrisso) for over 2 yrs, ended because of needing SBRT on one new nodule. My info from blood draws and scans continues to be tracked though. #LCSM |
| #LCSM Chat @lcsmchat RT @GeriGerim13: My Dr sugg. I go to Genecist. I had in right lung, then 6 months Later L lung. He believes 2 Primary Cancer, if so, not the norm #LCSM |
 | Treatment for Cancer @cancer_tm RT @LCAorg: Did you know that our nation's #veterans have a higher rate of #lungcancer diagnosis compared with the civilian population? The VA is starting to implement quality screening at their facilities+they've asked for our help. Learn more >> #LCSM >>https://t.co/uyF4OK0A20 https://t.co/mndqAVIHMm |
| #LCSM Chat @lcsmchat RT @debsmithbeach: @JFreemanDaily @GaleGordon19 @JackWestMD I was on a trial (for AZD9291/Tagrisso) for over 2 yrs, ended because of needing SBRT on one new nodule. My info from blood draws and scans continues to be tracked though. #LCSM |
| Dave Bjork @bjork5 @JFreemanDaily @Kathleen371215 @CathyToohey Hello from Georgetown, MA Kathleen. #LCSM |
| These Are My Scars @TheseAreMyScars @LungCancerFaces @Kathleen371215 @CathyToohey I forgot to mention that part d’oh! Stupid chemo brain #lcsm |
 | Bob Steele @steele_bob Shhh! Quietly sneaking in the back door. #lcsm |
| Janet Freeman-Daily @JFreemanDaily So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my first line radiation is actually a broken rib! Go figure. You know you're a cancer patient when a broken bone is ho-hum. #LCSM |
| #LCSM Chat @lcsmchat Just an FYI, if you have your account set to private, we can't see you. Also, remember to include #LCSM in all your tweets. You'll get used to it. Promise! |
| Danielle Pardue @Actorielle RT @JFreemanDaily: So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my first line radiation is actually a broken rib! Go figure. You know you're a cancer patient when a broken bone is ho-hum. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @steele_bob Not quiet enough! I see you Bob. #lcsm |
| Danielle Pardue @Actorielle RT @lcsmchat: Just an FYI, if you have your account set to private, we can't see you. Also, remember to include #LCSM in all your tweets. You'll get used to it. Promise! |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my first line radiation is actually a broken rib! Go figure. You know you're a cancer patient when a broken bone is ho-hum. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| Janet Freeman-Daily @JFreemanDaily So, @JackWestMD, what conferences have you been attending? Seems like you're never home anymore! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
 | Ian Pereira @IanJPereira RT @lcsmchat: On Thursday 1/25 at 8 PM Eastern (5 PM Pacific), #LCSM Chat will hold an Open Mic Night to talk about whatever #LungCancer topics are foremost on our minds. This would be a good chat for those who are just starting with Twitter or tweetchats: https://t.co/6MLl8di4X5 Join us! https://t.co/a6xvxAcEA7 |
| Bob Steele @steele_bob @JFreemanDaily @steele_bob Just scrolling through tonight's chat. Sorry I'm late. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| Marcy @Marcy65412751 @kscoon Ok thanks. I forgot what drug this was... @JackWestMD do you know of any patients that went back on a drug after years of being off of it ? #lcsm |
| Ian Pereira @IanJPereira RT @DrMisialek: I recap the newly updated guidelines on molecular testing in lung cancer https://t.co/sEuMlQ8PHY @Pathologists #LCSM https://t.co/2NvXx94qaY |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces Anyone coming to my neck of the woods to attend the Targeted Therapies in Lung Cancer meeting in Santa Monica? #lcsm |
| Ian Pereira @IanJPereira RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| H. Jack West, MD @JackWestMD Many review new data coming out. Heading to @PRIMOmeeting next wk. RT @JFreemanDaily: @JackWestMD, what confs have you been attend'g? #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Anyone coming to my neck of the woods to attend the Targeted Therapies in Lung Cancer meeting in Santa Monica? #lcsm |
| #LCSM Chat @lcsmchat RT @JackWestMD: Many review new data coming out. Heading to @PRIMOmeeting next wk. RT @JFreemanDaily: Many review new data coming out. Heading to @PRIMOmeeting next wk. RT @JFreemanDaily: @JackWestMD, what confs have you been attend'g? #lcsm |
| Janet Freeman-Daily @JFreemanDaily OK, if you aren’t going to feed me more questions, I’m posting cat pictures #LCSM https://t.co/nb204qU8j2 |
| These Are My Scars @TheseAreMyScars I have to say goodnightfolks, the doggie have to GO! Have a great week, hope to see you all at the next chat 👋#LCSM |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @TheseAreMyScars Bye, sweetie. #lcsm |
| It's me! @JohnLPender Signing off. See ya'll next time. #lcsm |
 | Jackie Fenemore RN, BSc,MSc @JackieFen1 RT @BTOGORG: Congratulations to the authors of our ten runners up conference posters - Dr Banu Rudran, Dr Rebecca Tay, Dr Iain Phillips, Nick Carey, Dr Anita Andreano, @drjmcaleese Dr Gavin Jones, @rhyswhiteRD Susan Jackson, Dr Lavanya Mariappan #BTOG2018 #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @JohnLPender See ya, John. Eat something naughty for me. #lcsm |
| H. Jack West, MD @JackWestMD I'll be there (w/my wife - she likes SoCal,too). MT @LungCancerFaces: Anyone coming to Targeted Therapies in LC mtg in Santa Monica? #lcsm |
| These Are My Scars @TheseAreMyScars @LungCancerFaces Bye Bye ps. I wish I was coming to your neck of the woods, it’s so friggen cold here!!! #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces @JackWestMD Hope we have decent weather. I know Janet, Lysa B, and Lisa Goldman will be there, too. I'll be there at night for fun. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, plus the advocacy groups send reps #LCSM |
| Ian Pereira @IanJPereira @dennycee @JFreemanDaily @GaleGordon19 @JackWestMD Curious - how would/could super responders/long-term survivors be better studied to help more? #lcsm #late |
| Deb Smith 🌻 @debsmithbeach @JFreemanDaily I'm happy it's happening and helping some patients. I'm not yet trying to learn much about it though, because EGFR. #LCSM |
 | diseases_an @diseases_an RT @LungCancerFaces: I call bullshit, too. What say you @KPShare? #tarceva #lungcancer #lcsm https://t.co/cyox4eNmVg |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, plus the advocacy groups send reps #LCSM |
| H. Jack West, MD @JackWestMD Done occasionally, but usually any response the second time around is short-lived if cancer previously developed acquired resistance on that agent/combo. #LCSM https://t.co/e9GqCFP3Fk |
| Janet Freeman-Daily @JFreemanDaily Only 10 minutes left in #LCSM chat! Get your questions out before we all turn into pumpkins. |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, plus the advocacy groups send reps #LCSM |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: @JackWestMD Hope we have decent weather. I know Janet, Lysa B, and Lisa Goldman will be there, too. I'll be there at night for fun. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, plus the advocacy groups send reps #LCSM |
| #LCSM Chat @lcsmchat RT @IanJPereira: @dennycee @JFreemanDaily @GaleGordon19 @JackWestMD Curious - how would/could super responders/long-term survivors be better studied to help more? #lcsm #late |
| #LCSM Chat @lcsmchat RT @JackWestMD: Done occasionally, but usually any response the second time around is short-lived if cancer previously developed acquired resistance on that agent/combo. #LCSM https://t.co/e9GqCFP3Fk |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Only 10 minutes left in #LCSM chat! Get your questions out before we all turn into pumpkins. |
| Danielle Pardue @Actorielle RT @JackWestMD: Done occasionally, but usually any response the second time around is short-lived if cancer previously developed acquired resistance on that agent/combo. #LCSM https://t.co/e9GqCFP3Fk |
| Janet Freeman-Daily @JFreemanDaily Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practice! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practice! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practice! #lcsm |
| Dave Bjork @bjork5 Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @LungCancerFaces #lcsm #433aDay |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @LungCancerFaces #lcsm #433aDay |
| Marcy @Marcy65412751 Any nscl squamous cell patients on here ? Follow me so we can chat. #lcsm |
| Treatment for Cancer @cancer_tm RT @JFreemanDaily: @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one right now (inherited EGFR T790M), and it's rare. #LCSM |
| #LCSM Chat @lcsmchat RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @LungCancerFaces #lcsm #433aDay |
| #LCSM Chat @lcsmchat RT @Marcy65412751: Any nscl squamous cell patients on here ? Follow me so we can chat. #lcsm |
| Jim Bordeaux @JBordeaux9 Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm |
 | Nathan A. Pennell MD, PhD, FASCO @n8pennell RT @JackWestMD: There are many variables. I think the biggest are the "tumor burden" & the underlying aggressiveness of the dzs. Pts w/small amt & slow-growing cancer can go eons before it develops resistance to EGFR TKIs. But not a variable we can control. #LCSM https://t.co/6Y9bBBAGAr |
| Danielle Pardue @Actorielle RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @LungCancerFaces #lcsm #433aDay |
| Denise Cutlip @dennycee Michigan signing out! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JBordeaux9 I dug up list of #lungcancer drugs recently approved a year ago, but it's out of date already! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @dennycee Nite! #lcsm |
| Danielle Pardue @Actorielle RT @JBordeaux9: Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces I knew that his co-chair, Frank LoBiondo, isn't. I did not know about Rick Nolan. @LCAorg @lgreco_ny #lcsm https://t.co/Piemu6uqRF |
| Dave Bjork @bjork5 RT @JFreemanDaily: Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practice! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's me at the top) https://t.co/lzi13vvtqh #LCSM |
| Danielle Pardue @Actorielle So grateful for this community, my friends. Thank you again! #LCSM |
| H. Jack West, MD @JackWestMD @JFreemanDaily thanks for moderating -- sorry not that much activity, but you tried mightily to get 'em on the dance floor. #lcsm |
| Janet Freeman-Daily @JFreemanDaily We’re in our final minutes - closing thoughts? #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's me at the top) https://t.co/lzi13vvtqh #LCSM |
| #LCSM Chat @lcsmchat RT @JBordeaux9: Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm |
 | Daniel Skipper @DCSkipperDO RT @AMPath: Updated AMP, @Pathologists & @IASLC #lungcancer guideline presents evidence-based molecular biomarker testing standards to improve #NSCLC patient care. #molpath #LCSM #LCNSC #PulmPath @BrighamWomens https://t.co/IX5BLekzTS https://t.co/yTLI23AUmI |
| Jim Bordeaux @JBordeaux9 @JFreemanDaily @jbordeaux9 I know, things are moving quickly. #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: I knew that his co-chair, Frank LoBiondo, isn't. I did not know about Rick Nolan. @LCAorg @lgreco_ny #lcsm https://t.co/Piemu6uqRF |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's me at the top) https://t.co/lzi13vvtqh #LCSM |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD @LungCancerFaces We're just going to have to tap dance faster! #lcsm |
| Faces of Lung Cancer 🇺🇦 @LungCancerFaces Thanks for herding cats this evening @JFreemanDaily. As always, love this community. See you in two weeks for the next chat. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Thanks for joining #LCSM Chat and Open Mic Night. Hope you enjoyed the community sharing (and hopefully learned something new). Night all! |
| Jim Bordeaux @JBordeaux9 @JFreemanDaily @JBordeaux9 I don't mind if it's not a date I'm just trying to get an idea. Can you send it to me #lcsm |
| Bob Steele @steele_bob RT @LungCancerFaces: Thanks for herding cats this evening @JFreemanDaily. As always, love this community. See you in two weeks for the next chat. #lcsm |
| Steve Holderness @dark_hawk_98 Thanks Janet for all of your efforts #lcsm |
| Bob Steele @steele_bob RT @Actorielle: So grateful for this community, my friends. Thank you again! #LCSM |
| Janet Freeman-Daily @JFreemanDaily @JBordeaux9 I'll see if I can find it in my mass of files. Might take me awhile, though. #LCSM |
| Jim Bordeaux @JBordeaux9 Good night! #lcsm |
| Jim Bordeaux @JBordeaux9 @JFreemanDaily @JBordeaux9 no hurry just at your convenience. #lcsm |
| Jim Bordeaux @JBordeaux9 @JBordeaux9 @JFreemanDaily thank you I appreciate it very much #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Thanks for joining #LCSM Chat and Open Mic Night. Hope you enjoyed the community sharing (and hopefully learned something new). Night all! |
| diseases_an @diseases_an RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist, owned by two cats #LCSM |
| Janet Freeman-Daily @JFreemanDaily No transcript for 1/25 #LCSM Chat Open Mic Night. We just relaxed and had a good time! |
 | Liz Cramer @oncELLEogy RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights every 1-2 mo #lcsm |
| Deb Smith 🌻 @debsmithbeach @JFreemanDaily Thanks, Janet! Take care. #LCSM |
| Bob Steele @steele_bob RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights every 1-2 mo #lcsm |
| Dave Bjork @bjork5 This! Support #lungcancer research #LCSM https://t.co/wlpkqU5867 |
 | Angie Derrick @AngieBDerrick RT @teamdraft: ATL #lungcancer survivor @pattypoolqueen1 is heading to the ProBowl #2018SuperBowlChallenge #LCSM @WinshipAtEmory @fredkalil @samcrenshaw23 https://t.co/MBY9pO6xUY |
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