#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Janet Freeman-Daily @JFreemanDaily Welcome to Open Mic Night on #LCSM Chat! |
| @dennycee Good evening all. Michigan in the house. #lcsm | |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to Open Mic Night on #LCSM Chat! |
| Janet Freeman-Daily @JFreemanDaily Denzie! So glad you joined the chat. It was looking like it would be the Deana and Janet Comedy hour for a second there... #lcsm |
| @LungCancerFaces @dennycee Hey you! #lcsm | |
| @LungCancerFaces Deana Hendrickson in Los Angeles here. #lcsm | |
 | Nancy Marquina @Nmarquina80 Hello everyone! #LCSM |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist, owned by two cats #LCSM |
| @LungCancerFaces @Nmarquina80 Hi Nancy! I'm still angry about the Kaiser Tarceva surcharge. #lcsm | |
| @LungCancerFaces [REDACTED USER] I'm so glad, too! #lcsm | |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/act… |
| Janet Freeman-Daily @JFreemanDaily Welcome @Nmarquina80 and [REDACTED USER]! Now we are five. #lcsm |
 | Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/act… |
| Upstage Lung Cancer @UpstageLungCanc Good evening, #LCSM friends! |
| @dennycee ! So glad you joined the chat. It was looking like it would be the Deana and Janet Comedy hour for a second there... #lcsm | |
| @LungCancerFaces @UpstageLungCanc Hello, lady. #lcsm | |
 | Deb 🌅 @debsmithbeach Hi, Deb from chilly NH here. Today, I went to see @1111linno at her art show opening! She's amazing in so many ways! #LCSM https://t.co/YDe3t6uVOs |
| @JohnLPender Anyone else using TweetChat? It's not showing all the tweets. #lcsm | |
 | Lung Cancer Halflung (K Latzka) @LungCancerHalfL I’m here...for now 😃 #LCSM |
| @LungCancerFaces @JohnLPender Try https://t.co/3LPtQs2zFu #lcsm | |
| Janet Freeman-Daily @JFreemanDaily Hiya @UpstageLungCanc and @JohnLPender! #lcsm |
| @LungCancerFaces @LungCancerHawai Hi K! Thanks for the advice earlier. It works! #lcsm | |
| Janet Freeman-Daily @JFreemanDaily Hey K! @LungCancerHawai #lcsm |
 | Danielle Pardue @Actorielle Helllllllo friends! Just finishing dinner: taco Tuesday means leftover taco Thursday! Lol! #LCSM |
| @LungCancerFaces @JackWestMD Whoa, it's Jack! #lcsm | |
| @JohnLPender @LungCancerFaces Switching now... #lcsm | |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD! Good to see you. Back from your travels? #lcsm |
| @LungCancerFaces @Actorielle Hi Danielle! How's married life treating you? #lcsm | |
| Janet Freeman-Daily @JFreemanDaily If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 Welcome Mary! We're a friendly bunch. #lcsm |
 | Steve Holderness @dark_hawk_98 The Ozarks of Arkansas are now represented. woot woot. LOL #lcsm |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| @LungCancerFaces @debsmithbeach @1111linno Hi Deb! What a fabulous pic! #lcsm | |
| Danielle Pardue @Actorielle RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… |
| Janet Freeman-Daily @JFreemanDaily @dark_hawk_98 Welcome to the Ozarks! #lcsm |
| @LungCancerFaces @dark_hawk_98 Hey Steve! Represent! #lcsm | |
| @LungCancerFaces @mschroeder3 Welcome, Mary! #lcsm | |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. BUT feel free to chime in--we don't bite. #lcsm |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD With you in spirit, #lcsm Will try hard to finish up and join! #goteam #PatientsFirst https://t.co/TXF5O5hWi6 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… |
| @Marcy65412751 Hello I am new to this chat! @Actorielle told me about it. My dad has had nscl for 7.5 years (squamous cell). Nice to meet all of you. #lcsm | |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL @JackWestMD @JFreemanDaily Can I hide in your luggage? Miss Hawaii bunches #lcsm |
| Deb 🌅 @debsmithbeach @LungCancerFaces @1111linno Linnea's son Peter was the photographer! #LCSM |
| Danielle Pardue @Actorielle @Marcy65412751 So happy you are here, my friend! #lcsm |
| @LungCancerFaces @TimAllenMDJD A big new job can be demanding. Work it! #lcsm | |
| @LungCancerFaces @Marcy65412751 Hi Marcy! Welcome. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #LCSM |
| @LungCancerFaces @debsmithbeach How wonderful! #lcsm | |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungc… |
| Janet Freeman-Daily @JFreemanDaily We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm |
| @ Hello y’all ... #LCSM https://t.co/3aUvNcWk1F | |
| Janet Freeman-Daily @JFreemanDaily Hey @JackWestMD, send me some ocean wave sound effects ... for @LungCancerHawai too! #lcsm |
| @LungCancerFaces So glad we found each other. Remember to add #LCSM to your tweets so everyone can pick them up during the chat. xo https://t.co/btsymjyxsh | |
| Janet Freeman-Daily @JFreemanDaily Hi @GeriGerim13 ! #lcsm |
| @dennycee Who will be at the FtB Lung Cancer Leadership Conference in Feb? #lcsm | |
| Janet Freeman-Daily @JFreemanDaily For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungc… |
| @LungCancerFaces @dennycee I didn't know about it. Tell us. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily @dennycee Didn't realize Free to Breathe had a Lung Cancer Leadership Conference in February. Links? #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD I listen to "ocean waves" via Alexa every night at bedtime. But Hawaii IRL sounds different. #lcsm |
 | Paula @paulalv @dennycee Hi Denise, I believe Lysa is going #lcsm |
| @JohnLPender @JackWestMD @JFreemanDaily I wonder if she has a white noise skill. Sure would help me at certain times. #lcsm | |
| @dennycee @JFreemanDaily @dennycee https://t.co/ubpCYWC1sS #lcsm | |
| Deb 🌅 @debsmithbeach I'd like to know about new research, especially related to EGFR/T7-90. #LCSM |
| @LungCancerFaces @JohnLPender I like recordings of being on a train. Relaxes me. Go figure. @JackWestMD @JFreemanDaily #lcsm | |
 | Team Draft @teamdraft Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScreening #LCSM https://t.co/cjjcQ17plT |
| @dennycee RT @paulalv: @dennycee Hi Denise, I believe Lysa is going #lcsm. Yeah, Anita is too. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #lcsm |
| #LCSM Chat @lcsmchat RT @debsmithbeach: I'd like to know about new research, especially related to EGFR/T7-90. #LCSM |
| @LungCancerFaces @mschroeder3 Remind me. Did I send you some resource links to get you started? #lcsm | |
| Danielle Pardue @Actorielle @JackWestMD Thank you for saying this. As much as I try to be "hypothetical," I can't deny that this is where my interests lie as well (mom was on an #Avelumab trial for about 28 mos and stopped voluntarily last May for moderate irAEs). #lcsm |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm |
| @dennycee @mschroeder3 best is to get a 2d opinion at NCI designated hospital. Has she started treatment? #lcsm | |
| Danielle Pardue @Actorielle RT @debsmithbeach: I'd like to know about new research, especially related to EGFR/T7-90. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #… |
| @Marcy65412751 Does anybody suffer from lymphedema as a result of their #lungcancer treatments ? #LCSM | |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #… |
| Janet Freeman-Daily @JFreemanDaily @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm |
| #LCSM Chat @lcsmchat RT @Marcy65412751: Does anybody suffer from lymphedema as a result of their #lungcancer treatments ? #LCSM |
| @ Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM | |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm |
| Danielle Pardue @Actorielle RT @GeriGerim13: Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM |
| @dennycee @Marcy65412751 I’ve a phone buddy who does. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily @Marcy65412751 Not to many #lungcancer patients have arm lymph nodes removed, so lymphedema isn't too common. Confirm @JackWestMD? #lcsm |
| #LCSM Chat @lcsmchat .@GaleGordon19 asks: I see that some egfr patients on this go many years without resistance developing. Why does no one study them to see if there is something there that might help others? #lcsm |
| #LCSM Chat @lcsmchat RT @GeriGerim13: Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM |
| Danielle Pardue @Actorielle Yeah--genetic testing is always in the background of my mind as well. Several cases of LC in my family and my husband's family. #LCSM |
| Deb 🌅 @debsmithbeach @JackWestMD Happy to know there are options. I've been on Tagrisso since 10/13, first in a trial @DanaFarber. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Marcy65412751 Not to many #lungcancer patients have arm lymph nodes removed, so lymphedema isn't too common. Confirm… |
| Janet Freeman-Daily @JFreemanDaily [REDACTED USER] Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chemo. Immunotherapy is more of a "hail Mary" (last resort) for those on TKIs . #LCSM |
 | Gale Gordon @GaleGordon19 @JFreemanDaily @JackWestMD Hi Why does no one seem interested in studying TKI SUPER RESPONDERS ? Might they not hold a clue that would help others? #LCSM |
| Deb 🌅 @debsmithbeach @JFreemanDaily I've been reading about these and look forward to when they're in regular use. I used to faint when I had a shot, now having blood work, having port accessed, seem benign! #LCSM |
| @LungCancerFaces Here you go. Some suggestions for newly diagnosed: https://t.co/72ADIdcKMX… and https://t.co/OTTE7hig0b and https://t.co/YecrZSPxKi… and https://t.co/wcBav23gJN… Anything else to suggest #LCSM? https://t.co/QBtHHVUvld | |
| Danielle Pardue @Actorielle RT @JFreemanDaily: [REDACTED USER] Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chem… |
 | Inspire @InspireIsHealth RT @ivybelkins: Thanks for sharing my lung cancer story @UChicagoMed @UChicagoMed. I’m alive today because of recent strides in lung cance… |
| @JohnLPender So who still eats a crappy diet? Because I sure haven't stopped. #lcsm | |
| @dennycee @JackWestMD asking for a friend-can a lung tumor be ablated under a local? #lcsm | |
| Janet Freeman-Daily @JFreemanDaily For the newbies among us, remember to include "#lcsm" in ALL your tweets -- if you don't we won't see your tweets in this chat #lcsm |
| #LCSM Chat @lcsmchat RT @GaleGordon19: @JFreemanDaily @JackWestMD Hi Why does no one seem interested in studying TKI SUPER RESPONDERS ? Might they not hold a… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: [REDACTED USER] Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chem… |
| #LCSM Chat @lcsmchat RT @dennycee: @JackWestMD asking for a friend-can a lung tumor be ablated under a local? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: For the newbies among us, remember to include "#lcsm" in ALL your tweets -- if you don't we won't see your tweets in thi… |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL I’m newly dx alpha-1 antitrypsin disorder. So I’m a little preoccupied with how this #halflung #hiker will keep up over the next 20 years 😢 #LCSM |
| @polksbc1 RT @teamdraft: Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScre… | |
| @dennycee @JackWestMD @dennycee Thx-she’s maxed on radiation. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just try to listen to their concerns and let them know they are not alone. #LCSM |
| @Marcy65412751 @JFreemanDaily @JackWestMD Oh okay... well he’s had it for over a year and they’re saying it could have been caused by radiation he received to his neck area (spread to lymph nodes) but the swelling is going down. #lcsm | |
| #LCSM Chat @lcsmchat RT @LungCancerHawai: I’m newly dx alpha-1 antitrypsin disorder. So I’m a little preoccupied with how this #halflung #hiker will keep up ove… |
| Janet Freeman-Daily @JFreemanDaily @GaleGordon19 @JackWestMD Help me out --- What do you mean by "TKI Super Responder"? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just… |
| Janet Freeman-Daily @JFreemanDaily @debsmithbeach Ports sure make life easy for scans and blood draws, don't they? #LCSM |
| Paula @paulalv @mschroeder3 Not everyone wants to talk about it. I would simply offer to listen if she needs to talk #lcsm |
| @LungCancerFaces Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm | |
| Janet Freeman-Daily @JFreemanDaily @Marcy65412751 @JackWestMD Sounds like he had radiation to lymph nodes--that could cause lymphedema. #LCSM |
| Deb 🌅 @debsmithbeach @JFreemanDaily Yes! I do have to look the other way though.... #LCSM |
| Danielle Pardue @Actorielle RT @LungCancerFaces: Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm |
| Janet Freeman-Daily @JFreemanDaily @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-ROS1 trial, 5 yrs No Evidence of Disease. My stats are being tracked by the trial. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @debsmithbeach Ports sure make life easy for scans and blood draws, don't they? #LCSM |
| #LCSM Chat @lcsmchat RT @paulalv: @mschroeder3 Not everyone wants to talk about it. I would simply offer to listen if she needs to talk #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm |
 | Jim Bordeaux @JBordeaux9 Better late than never! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-RO… |
| @LungCancerFaces @JBordeaux9 Hey Jim! #lcsm | |
 | Allison Smith @FalconAlley RT @teamdraft: Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScre… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-RO… |
| Janet Freeman-Daily @JFreemanDaily @JohnLPender Now that I've been around over 6.5 years, and NED for over 5, I'm having to start eating healthy so I don't develop OTHER health problems on top of cancer! #LCSM |
| Jim Bordeaux @JBordeaux9 @LungCancerFaces @JBordeaux9 open mic tonight? #lcsm |
| Deb 🌅 @debsmithbeach @mschroeder3 @LungCancerFaces I've also found the American Lung Association and their LungForce program helpful. #LCSM |
| @LungCancerFaces @JBordeaux9 Yep. Ask away. Or bring up a topic. #lcsm | |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @JohnLPender Now that I've been around over 6.5 years, and NED for over 5, I'm having to start eating healthy so I don't… |
| Janet Freeman-Daily @JFreemanDaily @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one right now (inherited EGFR T790M), and it's rare. #LCSM |
| @Marcy65412751 Do you guys know of anyone who went back on the same treatment after many years ? My dad may go back on something he took about 4 years ago. I know resistance develops but if it’s been many years since he took it is it still worth a shot? #lcsm | |
| Nancy Marquina @Nmarquina80 My dad is about to have his 2yr. Cancerversary in Feb. He’s been on #Terceva all this time. #survivor #lcsm |
 | Dave Bjork @bjork5 So sorry I’m late. Hey everyone from Boston! #lcsm |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/JgOiXNlm37 |
| Danielle Pardue @Actorielle @JFreemanDaily Yeah, for sure. Thank you so much! My maternal gma and my mom both had the same super rare subtype. I feel somewhat "cross-haired," lol. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @kscoon Be sure to include #LCSM in your tweets so everyone can see what you're saying |
| #LCSM Chat @lcsmchat RT @Nmarquina80: My dad is about to have his 2yr. Cancerversary in Feb. He’s been on #Terceva all this time. #survivor #lcsm |
| #LCSM Chat @lcsmchat RT @Marcy65412751: Do you guys know of anyone who went back on the same treatment after many years ? My dad may go back on something he too… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one rig… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @kscoon Be sure to include #LCSM in your tweets so everyone can see what you're saying |
| Dave Bjork @bjork5 RT @JFreemanDaily: @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just… |
| Janet Freeman-Daily @JFreemanDaily Some trials do subgroup analysis to find why certain groups respond really well. That's how we learned ALK+ patients responded well to crizotinib. #LCSM https://t.co/eFrIAfYrgu |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Some trials do subgroup analysis to find why certain groups respond really well. That's how we learned ALK+ patients re… |
| Janet Freeman-Daily @JFreemanDaily @bjork5 Hey Dave! Nice to see you. #lcsm |
| @ My Dr sugg. I go to Genecist. I had in right lung, then 6 months Later L lung. He believes 2 Primary Cancer, if so, not the norm #LCSM | |
| Janet Freeman-Daily @JFreemanDaily OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL @mschroeder3 Docs searched on my behalf. That was 8 yrs ago and low chance of Sq LC trials. Ended up on “traditional“ platinum chemo #lcsm |
| Janet Freeman-Daily @JFreemanDaily @Kathleen371215 @CathyToohey #LCSM stands for Lung Cancer Social Media. We're having a tweetchat right now. Join us! |
| Dave Bjork @bjork5 @JFreemanDaily Hi Janet. It’s been a while. But I’ve been following your journey on FB 😊 #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm |
| @LungCancerFaces @Kathleen371215 @CathyToohey #LCSM is a hashtag that stands for Lung Cancer Social Media. It gives lung cancer people a way to connect. | |
| Janet Freeman-Daily @JFreemanDaily @Nmarquina80 Congrats to your dad! Hope Tarceva keeps working a loooooong time for him. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Kathleen371215 @CathyToohey #LCSM stands for Lung Cancer Social Media. We're having a tweetchat right now. Join us! |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerHawai: @mschroeder3 Docs searched on my behalf. That was 8 yrs ago and low chance of Sq LC trials. Ended up on “traditional“… |
| Deb 🌅 @debsmithbeach @JFreemanDaily @GaleGordon19 @JackWestMD I was on a trial (for AZD9291/Tagrisso) for over 2 yrs, ended because of needing SBRT on one new nodule. My info from blood draws and scans continues to be tracked though. #LCSM |
| #LCSM Chat @lcsmchat RT @GeriGerim13: My Dr sugg. I go to Genecist. I had in right lung, then 6 months Later L lung. He believes 2 Primary Cancer, if so, not th… |
| @cancer_tm RT @LCAorg: Did you know that our nation's #veterans have a higher rate of #lungcancer diagnosis compared with the civilian population? The… | |
| #LCSM Chat @lcsmchat RT @debsmithbeach: @JFreemanDaily @GaleGordon19 @JackWestMD I was on a trial (for AZD9291/Tagrisso) for over 2 yrs, ended because of needin… |
| Dave Bjork @bjork5 @JFreemanDaily @Kathleen371215 @CathyToohey Hello from Georgetown, MA Kathleen. #LCSM |
 | Bob Steele @steele_bob Shhh! Quietly sneaking in the back door. #lcsm |
| Janet Freeman-Daily @JFreemanDaily So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my first line radiation is actually a broken rib! Go figure. You know you're a cancer patient when a broken bone is ho-hum. #LCSM |
| #LCSM Chat @lcsmchat Just an FYI, if you have your account set to private, we can't see you. Also, remember to include #LCSM in all your tweets. You'll get used to it. Promise! |
| Janet Freeman-Daily @JFreemanDaily @steele_bob Not quiet enough! I see you Bob. #lcsm |
| Danielle Pardue @Actorielle RT @lcsmchat: Just an FYI, if you have your account set to private, we can't see you. Also, remember to include #LCSM in all your tweets. Y… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my fir… |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| Janet Freeman-Daily @JFreemanDaily So, @JackWestMD, what conferences have you been attending? Seems like you're never home anymore! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| Bob Steele @steele_bob @JFreemanDaily @steele_bob Just scrolling through tonight's chat. Sorry I'm late. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| @Marcy65412751 @kscoon Ok thanks. I forgot what drug this was... @JackWestMD do you know of any patients that went back on a drug after years of being off of it ? #lcsm | |
| @LungCancerFaces Anyone coming to my neck of the woods to attend the Targeted Therapies in Lung Cancer meeting in Santa Monica? #lcsm | |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Anyone coming to my neck of the woods to attend the Targeted Therapies in Lung Cancer meeting in Santa Monica? #lcsm |
| Janet Freeman-Daily @JFreemanDaily OK, if you aren’t going to feed me more questions, I’m posting cat pictures #LCSM https://t.co/nb204qU8j2 |
| @LungCancerFaces [REDACTED USER] Bye, sweetie. #lcsm | |
| @JohnLPender Signing off. See ya'll next time. #lcsm | |
| @LungCancerFaces @JohnLPender See ya, John. Eat something naughty for me. #lcsm | |
| @LungCancerFaces @JackWestMD Hope we have decent weather. I know Janet, Lysa B, and Lisa Goldman will be there, too. I'll be there at night for fun. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, plus the advocacy groups send reps #LCSM |
| Deb 🌅 @debsmithbeach @JFreemanDaily I'm happy it's happening and helping some patients. I'm not yet trying to learn much about it though, because EGFR. #LCSM |
| @LungCancerFaces RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, pl… | |
| Janet Freeman-Daily @JFreemanDaily Only 10 minutes left in #LCSM chat! Get your questions out before we all turn into pumpkins. |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, pl… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Only 10 minutes left in #LCSM chat! Get your questions out before we all turn into pumpkins. |
| Janet Freeman-Daily @JFreemanDaily Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practice! #lcsm |
| Dave Bjork @bjork5 Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @LungCancerFaces #lcsm #433aDay |
| @LungCancerFaces RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @… | |
| @Marcy65412751 Any nscl squamous cell patients on here ? Follow me so we can chat. #lcsm | |
| @cancer_tm RT @JFreemanDaily: @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one rig… | |
| #LCSM Chat @lcsmchat RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @… |
| #LCSM Chat @lcsmchat RT @Marcy65412751: Any nscl squamous cell patients on here ? Follow me so we can chat. #lcsm |
| Jim Bordeaux @JBordeaux9 Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm |
| Danielle Pardue @Actorielle RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @… |
| @dennycee Michigan signing out! #lcsm | |
| Janet Freeman-Daily @JFreemanDaily @JBordeaux9 I dug up list of #lungcancer drugs recently approved a year ago, but it's out of date already! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @dennycee Nite! #lcsm |
| Danielle Pardue @Actorielle RT @JBordeaux9: Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm |
| @LungCancerFaces I knew that his co-chair, Frank LoBiondo, isn't. I did not know about Rick Nolan. @LCAorg @lgreco_ny #lcsm https://t.co/Piemu6uqRF | |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's me at the top) https://t.co/lzi13vvtqh #LCSM |
| Steve Holderness @dark_hawk_98 @Marcy65412751 I am a nsmlc Squamous patient |
| Danielle Pardue @Actorielle So grateful for this community, my friends. Thank you again! #LCSM |
| Janet Freeman-Daily @JFreemanDaily We’re in our final minutes - closing thoughts? #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's… |
| #LCSM Chat @lcsmchat RT @JBordeaux9: Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm |
 | Daniel Skipper @DCSkipperDO RT @AMPath: Updated AMP, @Pathologists & @IASLC #lungcancer guideline presents evidence-based molecular biomarker testing standards to impr… |
| Jim Bordeaux @JBordeaux9 @JFreemanDaily @jbordeaux9 I know, things are moving quickly. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's… |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD @LungCancerFaces We're just going to have to tap dance faster! #lcsm |
| @LungCancerFaces Thanks for herding cats this evening @JFreemanDaily. As always, love this community. See you in two weeks for the next chat. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily Thanks for joining #LCSM Chat and Open Mic Night. Hope you enjoyed the community sharing (and hopefully learned something new). Night all! |
| Jim Bordeaux @JBordeaux9 @JFreemanDaily @JBordeaux9 I don't mind if it's not a date I'm just trying to get an idea. Can you send it to me #lcsm |
| Bob Steele @steele_bob RT @LungCancerFaces: Thanks for herding cats this evening @JFreemanDaily. As always, love this community. See you in two weeks for the next… |
| Steve Holderness @dark_hawk_98 Thanks Janet for all of your efforts #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JBordeaux9 I'll see if I can find it in my mass of files. Might take me awhile, though. #LCSM |
| Jim Bordeaux @JBordeaux9 Good night! #lcsm |
| Jim Bordeaux @JBordeaux9 @JFreemanDaily @JBordeaux9 no hurry just at your convenience. #lcsm |
| Jim Bordeaux @JBordeaux9 @JBordeaux9 @JFreemanDaily thank you I appreciate it very much #lcsm |
| @diseases_an RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/act… | |
| Janet Freeman-Daily @JFreemanDaily No transcript for 1/25 #LCSM Chat Open Mic Night. We just relaxed and had a good time! |
| Deb 🌅 @debsmithbeach @JFreemanDaily Thanks, Janet! Take care. #LCSM |
| Dave Bjork @bjork5 This! Support #lungcancer research #LCSM https://t.co/wlpkqU5867 |
 | Angie Derrick @AngieBDerrick RT @teamdraft: ATL #lungcancer survivor @pattypoolqueen1 is heading to the ProBowl #2018SuperBowlChallenge #LCSM @WinshipAtEmory @fredkalil… |
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