#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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| Profile | Tweet |
|---|---|
 | Janet Freeman-Daily @JFreemanDaily Welcome to Open Mic Night on #LCSM Chat! |
 | Denise Cutlip @dennycee Good evening all. Michigan in the house. #lcsm |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to Open Mic Night on #LCSM Chat! |
| Janet Freeman-Daily @JFreemanDaily Denzie! So glad you joined the chat. It was looking like it would be the Deana and Janet Comedy hour for a second there... #lcsm |
 | Faces of Lung Cancer @LungCancerFaces @dennycee Hey you! #lcsm |
| Faces of Lung Cancer @LungCancerFaces Deana Hendrickson in Los Angeles here. #lcsm |
 | Nancy Marquina @Nmarquina80 Hello everyone! #LCSM |
 | These Are My Scars @TheseAreMyScars Hey everyone, Toronto in the House. So happy to finally be free!! #LCSM |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist, owned by two cats #LCSM |
| Faces of Lung Cancer @LungCancerFaces @Nmarquina80 Hi Nancy! I'm still angry about the Kaiser Tarceva surcharge. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @TheseAreMyScars I'm so glad, too! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/act… |
| Janet Freeman-Daily @JFreemanDaily Welcome @Nmarquina80 and @TheseAreMyScars! Now we are five. #lcsm |
 | Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/act… |
| Upstage Lung Cancer @UpstageLungCanc Good evening, #LCSM friends! |
| Denise Cutlip @dennycee ! So glad you joined the chat. It was looking like it would be the Deana and Janet Comedy hour for a second there... #lcsm |
| Faces of Lung Cancer @LungCancerFaces @UpstageLungCanc Hello, lady. #lcsm |
 | Deb Smith 🌊🗽 😷 @debsmithbeach Hi, Deb from chilly NH here. Today, I went to see @1111linno at her art show opening! She's amazing in so many ways! #LCSM https://t.co/YDe3t6uVOs |
 | John from Alabama, The Liger King @JohnLPender Anyone else using TweetChat? It's not showing all the tweets. #lcsm |
 | Lung Cancer Halflung (K Latzka) @LungCancerHalfL I’m here...for now 😃 #LCSM |
| Faces of Lung Cancer @LungCancerFaces @JohnLPender Try https://t.co/3LPtQs2zFu #lcsm |
| Janet Freeman-Daily @JFreemanDaily Hiya @UpstageLungCanc and @JohnLPender! #lcsm |
 | Charles Ricordel @C_Ricordel RT @DrRiyazShah: Besse thoughts on subgroups who may not benefit from IO #BTOG2018 #LCSM https://t.co/wM9IGFF3Jj |
| Faces of Lung Cancer @LungCancerFaces @LungCancerHawai Hi K! Thanks for the advice earlier. It works! #lcsm |
| Janet Freeman-Daily @JFreemanDaily Hey K! @LungCancerHawai #lcsm |
 | Danielle Pardue @Actorielle Helllllllo friends! Just finishing dinner: taco Tuesday means leftover taco Thursday! Lol! #LCSM |
 | H. Jack West, MD @JackWestMD Hi, folks! I hope my #LCSM friends are doing well. |
| Faces of Lung Cancer @LungCancerFaces @JackWestMD Whoa, it's Jack! #lcsm |
| John from Alabama, The Liger King @JohnLPender @LungCancerFaces Switching now... #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD! Good to see you. Back from your travels? #lcsm |
| Faces of Lung Cancer @LungCancerFaces @Actorielle Hi Danielle! How's married life treating you? #lcsm |
| Janet Freeman-Daily @JFreemanDaily If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD |
 | Mary Schroeder @mschroeder3 #LCSM chat |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 Welcome Mary! We're a friendly bunch. #lcsm |
| H. Jack West, MD @JackWestMD Between travels. Heading to a mtg next week (Maui). RT @JFreemanDaily: @JackWestMD! Good to see you. Back from your travels? #lcsm |
 | Steve Holderness @dark_hawk_98 The Ozarks of Arkansas are now represented. woot woot. LOL #lcsm |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Faces of Lung Cancer @LungCancerFaces @debsmithbeach @1111linno Hi Deb! What a fabulous pic! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… |
| Janet Freeman-Daily @JFreemanDaily @dark_hawk_98 Welcome to the Ozarks! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @dark_hawk_98 Hey Steve! Represent! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @mschroeder3 Welcome, Mary! #lcsm |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. BUT feel free to chime in--we don't bite. #lcsm |
 | Timothy Craig Allen @TimAllenMDJD With you in spirit, #lcsm Will try hard to finish up and join! #goteam #PatientsFirst https://t.co/TXF5O5hWi6 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… |
 | Marcy @Marcy65412751 Hello I am new to this chat! @Actorielle told me about it. My dad has had nscl for 7.5 years (squamous cell). Nice to meet all of you. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. BUT feel free to chime in--we don'… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL @JackWestMD @JFreemanDaily Can I hide in your luggage? Miss Hawaii bunches #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. BUT feel free to chime in--we don'… |
| Deb Smith 🌊🗽 😷 @debsmithbeach @LungCancerFaces @1111linno Linnea's son Peter was the photographer! #LCSM |
| Danielle Pardue @Actorielle @Marcy65412751 So happy you are here, my friend! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @TimAllenMDJD A big new job can be demanding. Work it! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @Marcy65412751 Hi Marcy! Welcome. #lcsm |
| Janet Freeman-Daily @JFreemanDaily We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #LCSM |
| Faces of Lung Cancer @LungCancerFaces @debsmithbeach How wonderful! #lcsm |
| H. Jack West, MD @JackWestMD Will sent Hawaii your regards... RT @LungCancerHawai: @JackWestMD @JFreemanDaily Can I hide in your luggage? Miss Hawaii bunches #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungc… |
| Mary Schroeder @mschroeder3 #LCSM@lcsmchat |
| Janet Freeman-Daily @JFreemanDaily We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm |
 | Geri Massa @GeriGerim13 Hello y’all ... #LCSM https://t.co/3aUvNcWk1F |
| Janet Freeman-Daily @JFreemanDaily Hey @JackWestMD, send me some ocean wave sound effects ... for @LungCancerHawai too! #lcsm |
| Faces of Lung Cancer @LungCancerFaces So glad we found each other. Remember to add #LCSM to your tweets so everyone can pick them up during the chat. xo https://t.co/btsymjyxsh |
| These Are My Scars @TheseAreMyScars Q what is in the pipeline after the current second and third gen ALK TKIs? #LCSM |
| Janet Freeman-Daily @JFreemanDaily Hi @GeriGerim13 ! #lcsm |
| Denise Cutlip @dennycee Who will be at the FtB Lung Cancer Leadership Conference in Feb? #lcsm |
| Janet Freeman-Daily @JFreemanDaily For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm |
| H. Jack West, MD @JackWestMD There's an Alexa skill for that. Nice to fall asleep to. RT @JFreemanDaily: Hey @JackWestMD, send me some ocean wave sound effects #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungc… |
| Faces of Lung Cancer @LungCancerFaces @dennycee I didn't know about it. Tell us. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @dennycee Didn't realize Free to Breathe had a Lung Cancer Leadership Conference in February. Links? #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: So glad we found each other. Remember to add #LCSM to your tweets so everyone can pick them up during the chat. xo htt… |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: Q what is in the pipeline after the current second and third gen ALK TKIs? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD I listen to "ocean waves" via Alexa every night at bedtime. But Hawaii IRL sounds different. #lcsm |
 | Paula Ashton @paulalv @dennycee Hi Denise, I believe Lysa is going #lcsm |
| John from Alabama, The Liger King @JohnLPender @JackWestMD @JFreemanDaily I wonder if she has a white noise skill. Sure would help me at certain times. #lcsm |
| H. Jack West, MD @JackWestMD Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights every 1-2 mo #lcsm |
| Denise Cutlip @dennycee @JFreemanDaily @dennycee https://t.co/ubpCYWC1sS #lcsm |
| Deb Smith 🌊🗽 😷 @debsmithbeach I'd like to know about new research, especially related to EGFR/T7-90. #LCSM |
| Mary Schroeder @mschroeder3 My mother inlaw was just diagnosed with lc and it is spreading new to this #LCSM |
| Faces of Lung Cancer @LungCancerFaces @JohnLPender I like recordings of being on a train. Relaxes me. Go figure. @JackWestMD @JFreemanDaily #lcsm |
 | Team Draft @teamdraft Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScreening #LCSM https://t.co/cjjcQ17plT |
| Denise Cutlip @dennycee RT @paulalv: @dennycee Hi Denise, I believe Lysa is going #lcsm. Yeah, Anita is too. #lcsm |
| Danielle Pardue @Actorielle RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights e… |
| Janet Freeman-Daily @JFreemanDaily Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #lcsm |
| #LCSM Chat @lcsmchat RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights e… |
| #LCSM Chat @lcsmchat RT @debsmithbeach: I'd like to know about new research, especially related to EGFR/T7-90. #LCSM |
| Faces of Lung Cancer @LungCancerFaces @mschroeder3 Remind me. Did I send you some resource links to get you started? #lcsm |
| Danielle Pardue @Actorielle @JackWestMD Thank you for saying this. As much as I try to be "hypothetical," I can't deny that this is where my interests lie as well (mom was on an #Avelumab trial for about 28 mos and stopped voluntarily last May for moderate irAEs). #lcsm |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm |
| Denise Cutlip @dennycee @mschroeder3 best is to get a 2d opinion at NCI designated hospital. Has she started treatment? #lcsm |
| Danielle Pardue @Actorielle RT @debsmithbeach: I'd like to know about new research, especially related to EGFR/T7-90. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #… |
| Marcy @Marcy65412751 Does anybody suffer from lymphedema as a result of their #lungcancer treatments ? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #… |
| Janet Freeman-Daily @JFreemanDaily @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm |
| These Are My Scars @TheseAreMyScars Q- do you happen to know if they are using the chemo in conjunction with the TKIs, or stopping the TKI and doing a few cycles of infusion? Is IO thrown into the mix at all? #lcsm https://t.co/0l0o2ooq9r |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm |
| #LCSM Chat @lcsmchat RT @Marcy65412751: Does anybody suffer from lymphedema as a result of their #lungcancer treatments ? #LCSM |
| Geri Massa @GeriGerim13 Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm |
| H. Jack West, MD @JackWestMD Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Like to know research re: EGFR/T790. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm |
| Danielle Pardue @Actorielle RT @GeriGerim13: Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM |
| Denise Cutlip @dennycee @Marcy65412751 I’ve a phone buddy who does. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @Marcy65412751 Not to many #lungcancer patients have arm lymph nodes removed, so lymphedema isn't too common. Confirm @JackWestMD? #lcsm |
| Danielle Pardue @Actorielle RT @JackWestMD: Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Like to know research re:… |
| #LCSM Chat @lcsmchat .@GaleGordon19 asks: I see that some egfr patients on this go many years without resistance developing. Why does no one study them to see if there is something there that might help others? #lcsm |
| These Are My Scars @TheseAreMyScars Yes! I cut out salt and high sodium foods, used compression socks. #lcsm Do you know if it’s medication related or surgically related from the removal of lymph nodes? #lcsm https://t.co/SL6gHhLKST |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: Q- do you happen to know if they are using the chemo in conjunction with the TKIs, or stopping the TKI and doing a few… |
| Danielle Pardue @Actorielle Yeah--genetic testing is always in the background of my mind as well. Several cases of LC in my family and my husband's family. #LCSM |
| #LCSM Chat @lcsmchat RT @GeriGerim13: Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM |
| H. Jack West, MD @JackWestMD Yup. RT @JFreemanDaily: @Marcy65412751 Not many LC pts have arm lymph nodes removed, so lymphedema isn't common. Confirm @JackWestMD? #lcsm |
| Deb Smith 🌊🗽 😷 @debsmithbeach @JackWestMD Happy to know there are options. I've been on Tagrisso since 10/13, first in a trial @DanaFarber. #LCSM |
| #LCSM Chat @lcsmchat RT @JackWestMD: Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Like to know research re:… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Marcy65412751 Not to many #lungcancer patients have arm lymph nodes removed, so lymphedema isn't too common. Confirm… |
| Janet Freeman-Daily @JFreemanDaily @TheseAreMyScars Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chemo. Immunotherapy is more of a "hail Mary" (last resort) for those on TKIs . #LCSM |
 | Gale Gordon @GaleGordon19 @JFreemanDaily @JackWestMD Hi Why does no one seem interested in studying TKI SUPER RESPONDERS ? Might they not hold a clue that would help others? #LCSM |
| Danielle Pardue @Actorielle RT @JackWestMD: Yup. RT @JFreemanDaily: @Marcy65412751 Not many LC pts have arm lymph nodes removed, so lymphedema isn't common. Confirm @… |
| Deb Smith 🌊🗽 😷 @debsmithbeach @JFreemanDaily I've been reading about these and look forward to when they're in regular use. I used to faint when I had a shot, now having blood work, having port accessed, seem benign! #LCSM |
| These Are My Scars @TheseAreMyScars Let me rephrase, not lymphedema, but edema yes. While on one of my medications, my legs and hands would swell on a regular basis. #lcsm https://t.co/SL6gHhLKST |
| H. Jack West, MD @JackWestMD @debsmithbeach if any place is likely to have novel trial option after progress'n on osimertinib (Tagrisso), it's @DanaFarber (or MGH) #lcsm |
| Faces of Lung Cancer @LungCancerFaces Here you go. Some suggestions for newly diagnosed: https://t.co/72ADIdcKMX… and https://t.co/OTTE7hig0b and https://t.co/YecrZSPxKi… and https://t.co/wcBav23gJN… Anything else to suggest #LCSM? https://t.co/QBtHHVUvld |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @TheseAreMyScars Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chem… |
 | Inspire @teaminspire RT @ivybelkins: Thanks for sharing my lung cancer story @UChicagoMed @UChicagoMed. I’m alive today because of recent strides in lung cance… |
| John from Alabama, The Liger King @JohnLPender So who still eats a crappy diet? Because I sure haven't stopped. #lcsm |
| Denise Cutlip @dennycee @JackWestMD asking for a friend-can a lung tumor be ablated under a local? #lcsm |
| Janet Freeman-Daily @JFreemanDaily For the newbies among us, remember to include "#lcsm" in ALL your tweets -- if you don't we won't see your tweets in this chat #lcsm |
| Danielle Pardue @Actorielle RT @JackWestMD: @debsmithbeach if any place is likely to have novel trial option after progress'n on osimertinib (Tagrisso), it's @DanaFarb… |
| #LCSM Chat @lcsmchat RT @GaleGordon19: @JFreemanDaily @JackWestMD Hi Why does no one seem interested in studying TKI SUPER RESPONDERS ? Might they not hold a… |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: Yes! I cut out salt and high sodium foods, used compression socks. #lcsm Do you know if it’s medication related or sur… |
| #LCSM Chat @lcsmchat RT @JackWestMD: Yup. RT @JFreemanDaily: @Marcy65412751 Not many LC pts have arm lymph nodes removed, so lymphedema isn't common. Confirm @… |
| #LCSM Chat @lcsmchat RT @Actorielle: Yeah--genetic testing is always in the background of my mind as well. Several cases of LC in my family and my husband's fam… |
| #LCSM Chat @lcsmchat RT @debsmithbeach: @JackWestMD Happy to know there are options. I've been on Tagrisso since 10/13, first in a trial @DanaFarber. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TheseAreMyScars Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chem… |
| Mary Schroeder @mschroeder3 Anyone have ideas how to help some one with lung cancer. I think she is in denial and won't talk about it #LCSM |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: Let me rephrase, not lymphedema, but edema yes. While on one of my medications, my legs and hands would swell on a reg… |
| Danielle Pardue @Actorielle RT @LungCancerFaces: Here you go. Some suggestions for newly diagnosed: https://t.co/72ADIdcKMX… and https://t.co/OTTE7hig0b and https://t.… |
| These Are My Scars @TheseAreMyScars @JFreemanDaily Thank you :) that’s what I’ve heard as well re: IO #lcsm |
| #LCSM Chat @lcsmchat RT @JackWestMD: @debsmithbeach if any place is likely to have novel trial option after progress'n on osimertinib (Tagrisso), it's @DanaFarb… |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Here you go. Some suggestions for newly diagnosed: https://t.co/72ADIdcKMX… and https://t.co/OTTE7hig0b and https://t.… |
| #LCSM Chat @lcsmchat RT @dennycee: @JackWestMD asking for a friend-can a lung tumor be ablated under a local? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: For the newbies among us, remember to include "#lcsm" in ALL your tweets -- if you don't we won't see your tweets in thi… |
| H. Jack West, MD @JackWestMD Rarely done. If just one spot to treat, usually do radiation. MT @dennycee: @JackWestMD -can a lung tumor be ablated under a local? #lcsm |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL I’m newly dx alpha-1 antitrypsin disorder. So I’m a little preoccupied with how this #halflung #hiker will keep up over the next 20 years 😢 #LCSM |
| #LCSM Chat @lcsmchat RT @mschroeder3: Anyone have ideas how to help some one with lung cancer. I think she is in denial and won't talk about it #LCSM |
 | Polk SBC - DJPolk @polksbc1 RT @teamdraft: Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScre… |
| Polk SBC - DJPolk @polksbc1 RT @teamdraft: It’s go time! @pattypoolqueen1 @Delta heading down to #ProBowl #Orlando @WinshipAtEmory #2018SuperBowlChallenge #tacklinglun… |
| Denise Cutlip @dennycee @JackWestMD @dennycee Thx-she’s maxed on radiation. #lcsm |
| Marcy @Marcy65412751 @JFreemanDaily @JackWestMD Oh okay... well he’s had it for over a year and they’re saying it could have been caused by radiation he received to his neck area (spread to lymph nodes) but the swelling is going down. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just try to listen to their concerns and let them know they are not alone. #LCSM |
| #LCSM Chat @lcsmchat RT @JackWestMD: Rarely done. If just one spot to treat, usually do radiation. MT @dennycee: @JackWestMD -can a lung tumor be ablated under… |
| #LCSM Chat @lcsmchat RT @LungCancerHawai: I’m newly dx alpha-1 antitrypsin disorder. So I’m a little preoccupied with how this #halflung #hiker will keep up ove… |
 | Kristine Cherol @kscoon My husband really didn’t change his diet. It was more a battle for him to eat whatever he could tolerate with EGFR TKIs and then with chemo. Just happy he was eating. https://t.co/GK4ul9JcO8 |
| H. Jack West, MD @JackWestMD Great to hear. Few w/longer history! MT @debsmithbeach: @JackWestMD I've been on Tagrisso since 10/13, first in a trial @DanaFarber. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @GaleGordon19 @JackWestMD Help me out --- What do you mean by "TKI Super Responder"? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just… |
| H. Jack West, MD @JackWestMD Suspect not a good idea, I'm afraid. Even if someone would. RT @dennycee: @JackWestMD @dennycee Thx-she’s maxed on radiation. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @debsmithbeach Ports sure make life easy for scans and blood draws, don't they? #LCSM |
| Paula Ashton @paulalv @mschroeder3 Not everyone wants to talk about it. I would simply offer to listen if she needs to talk #lcsm |
| Faces of Lung Cancer @LungCancerFaces Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm |
| Janet Freeman-Daily @JFreemanDaily @Marcy65412751 @JackWestMD Sounds like he had radiation to lymph nodes--that could cause lymphedema. #LCSM |
| Deb Smith 🌊🗽 😷 @debsmithbeach @JFreemanDaily Yes! I do have to look the other way though.... #LCSM |
| Kristine Cherol @kscoon RT @JohnLPender: So who still eats a crappy diet? Because I sure haven't stopped. #lcsm |
| Danielle Pardue @Actorielle RT @LungCancerFaces: Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm |
| Kristine Cherol @kscoon My husband really didn’t change his diet. It was more a battle for him to eat whatever he could tolerate with EGFR TKIs and then with chemo. Just happy he was eating. #lcsm https://t.co/GK4ul9JcO8 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @debsmithbeach Ports sure make life easy for scans and blood draws, don't they? #LCSM |
| Janet Freeman-Daily @JFreemanDaily @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-ROS1 trial, 5 yrs No Evidence of Disease. My stats are being tracked by the trial. #LCSM |
| #LCSM Chat @lcsmchat RT @paulalv: @mschroeder3 Not everyone wants to talk about it. I would simply offer to listen if she needs to talk #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm |
| #LCSM Chat @lcsmchat RT @kscoon: My husband really didn’t change his diet. It was more a battle for him to eat whatever he could tolerate with EGFR TKIs and the… |
 | Jim Bordeaux @JBordeaux9 Better late than never! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-RO… |
| Faces of Lung Cancer @LungCancerFaces @JBordeaux9 Hey Jim! #lcsm |
| H. Jack West, MD @JackWestMD Pt w/ (long) complete or near complete response. MT @JFreemanDaily: @GaleGordon19 @JackWestMD What do you mean "TKI Super Responder"? #LCSM |
| These Are My Scars @TheseAreMyScars I loooove my port!! I highly recommend getting one if you are going to be on long term treatment. Makes CTs and blood draws so easy! #lcsm https://t.co/256ad3zEI9 |
 | Allison Smith @falconalley RT @teamdraft: Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScre… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-RO… |
| #LCSM Chat @lcsmchat RT @JackWestMD: Pt w/ (long) complete or near complete response. MT @JFreemanDaily: @GaleGordon19 @JackWestMD What do you mean "TKI Super R… |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: I loooove my port!! I highly recommend getting one if you are going to be on long term treatment. Makes CTs and blood… |
| Janet Freeman-Daily @JFreemanDaily @JohnLPender Now that I've been around over 6.5 years, and NED for over 5, I'm having to start eating healthy so I don't develop OTHER health problems on top of cancer! #LCSM |
| Jim Bordeaux @JBordeaux9 @LungCancerFaces @JBordeaux9 open mic tonight? #lcsm |
| Deb Smith 🌊🗽 😷 @debsmithbeach @mschroeder3 @LungCancerFaces I've also found the American Lung Association and their LungForce program helpful. #LCSM |
| Kristine Cherol @kscoon It would be interesting for super responders to be studied specifically to find out if they have different traits that contribute to their long term success. Instead of just being a statistic in a large trial data pool. https://t.co/bm89Olpfao |
| Faces of Lung Cancer @LungCancerFaces @JBordeaux9 Yep. Ask away. Or bring up a topic. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @JohnLPender Now that I've been around over 6.5 years, and NED for over 5, I'm having to start eating healthy so I don't… |
| Janet Freeman-Daily @JFreemanDaily @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one right now (inherited EGFR T790M), and it's rare. #LCSM |
| These Are My Scars @TheseAreMyScars I have also been called a super responder, 5yrs on Crizo and almost 2 on Lorlatinib. Consequently I have also gained a heck of a lot of weight, I have heard it may be connected. Myth? #LCSM |
| Marcy @Marcy65412751 Do you guys know of anyone who went back on the same treatment after many years ? My dad may go back on something he took about 4 years ago. I know resistance develops but if it’s been many years since he took it is it still worth a shot? #lcsm |
| Mary Schroeder @mschroeder3 How do you find out about trials? She has stage 4 Lung cancer had in brain but had surgery and in adrenal gland going to do radiation treatments #LCSM |
| Nancy Marquina @Nmarquina80 My dad is about to have his 2yr. Cancerversary in Feb. He’s been on #Terceva all this time. #survivor #lcsm |
| Kristine Cherol @kscoon It would be interesting for super responders to be studied specifically to find out if they have different traits that contribute to their long term success. Instead of just being a statistic in a large trial data pool. #LCSM https://t.co/bm89Olpfao |
 | Dave Bjork @bjork5 So sorry I’m late. Hey everyone from Boston! #lcsm |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/JgOiXNlm37 |
| Danielle Pardue @Actorielle @JFreemanDaily Yeah, for sure. Thank you so much! My maternal gma and my mom both had the same super rare subtype. I feel somewhat "cross-haired," lol. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @kscoon Be sure to include #LCSM in your tweets so everyone can see what you're saying |
| Kristine Cherol @kscoon Sometimes your oncologist can help, but a lot of times is self research. Check out https://t.co/ujqqENa19h #LCSM https://t.co/TpESlgpwbc |
| #LCSM Chat @lcsmchat RT @kscoon: It would be interesting for super responders to be studied specifically to find out if they have different traits that contribu… |
| #LCSM Chat @lcsmchat RT @Nmarquina80: My dad is about to have his 2yr. Cancerversary in Feb. He’s been on #Terceva all this time. #survivor #lcsm |
| #LCSM Chat @lcsmchat RT @mschroeder3: How do you find out about trials? She has stage 4 Lung cancer had in brain but had surgery and in adrenal gland going to d… |
| #LCSM Chat @lcsmchat RT @Marcy65412751: Do you guys know of anyone who went back on the same treatment after many years ? My dad may go back on something he too… |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: I have also been called a super responder, 5yrs on Crizo and almost 2 on Lorlatinib. Consequently I have also gained a… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one rig… |
| These Are My Scars @TheseAreMyScars @kscoon it’s so good to see you lovely lady 😘 #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @kscoon Be sure to include #LCSM in your tweets so everyone can see what you're saying |
| Dave Bjork @bjork5 RT @JFreemanDaily: @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just… |
| #LCSM Chat @lcsmchat RT @kscoon: Sometimes your oncologist can help, but a lot of times is self research. Check out https://t.co/ujqqENa19h #LCSM https://t.co/T… |
| H. Jack West, MD @JackWestMD There are many variables. I think the biggest are the "tumor burden" & the underlying aggressiveness of the dzs. Pts w/small amt & slow-growing cancer can go eons before it develops resistance to EGFR TKIs. But not a variable we can control. #LCSM https://t.co/6Y9bBBAGAr |
| Janet Freeman-Daily @JFreemanDaily Some trials do subgroup analysis to find why certain groups respond really well. That's how we learned ALK+ patients responded well to crizotinib. #LCSM https://t.co/eFrIAfYrgu |
| #LCSM Chat @lcsmchat RT @JackWestMD: There are many variables. I think the biggest are the "tumor burden" & the underlying aggressiveness of the dzs. Pts w/smal… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Some trials do subgroup analysis to find why certain groups respond really well. That's how we learned ALK+ patients re… |
| Janet Freeman-Daily @JFreemanDaily @bjork5 Hey Dave! Nice to see you. #lcsm |
| Geri Massa @GeriGerim13 My Dr sugg. I go to Genecist. I had in right lung, then 6 months Later L lung. He believes 2 Primary Cancer, if so, not the norm #LCSM |
| Janet Freeman-Daily @JFreemanDaily OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm |
| Kristine Cherol @kscoon RT @Marcy65412751: Do you guys know of anyone who went back on the same treatment after many years ? My dad may go back on something he too… |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL @mschroeder3 Docs searched on my behalf. That was 8 yrs ago and low chance of Sq LC trials. Ended up on “traditional“ platinum chemo #lcsm |
| Janet Freeman-Daily @JFreemanDaily @Kathleen371215 @CathyToohey #LCSM stands for Lung Cancer Social Media. We're having a tweetchat right now. Join us! |
| Dave Bjork @bjork5 @JFreemanDaily Hi Janet. It’s been a while. But I’ve been following your journey on FB 😊 #LCSM |
| These Are My Scars @TheseAreMyScars @Kathleen371215 @CathyToohey Lung Cancer Social Media I believe #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm |
| Faces of Lung Cancer @LungCancerFaces @Kathleen371215 @CathyToohey #LCSM is a hashtag that stands for Lung Cancer Social Media. It gives lung cancer people a way to connect. |
| Janet Freeman-Daily @JFreemanDaily @Nmarquina80 Congrats to your dad! Hope Tarceva keeps working a loooooong time for him. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Kathleen371215 @CathyToohey #LCSM stands for Lung Cancer Social Media. We're having a tweetchat right now. Join us! |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerHawai: @mschroeder3 Docs searched on my behalf. That was 8 yrs ago and low chance of Sq LC trials. Ended up on “traditional“… |
| Danielle Pardue @Actorielle RT @LungCancerFaces: @Kathleen371215 @CathyToohey #LCSM is a hashtag that stands for Lung Cancer Social Media. It gives lung cancer people… |
| Kristine Cherol @kscoon I think it depends on treatment, there are people who’ve done a rechallenge with shorter success. Or they’ve have success with TKI after chemo gets them to NED. Also depending on mutation, can combine prior med with new one. #LCSM https://t.co/2zmXubGAXL |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: @Kathleen371215 @CathyToohey #LCSM is a hashtag that stands for Lung Cancer Social Media. It gives lung cancer people… |
| Deb Smith 🌊🗽 😷 @debsmithbeach @JFreemanDaily @GaleGordon19 @JackWestMD I was on a trial (for AZD9291/Tagrisso) for over 2 yrs, ended because of needing SBRT on one new nodule. My info from blood draws and scans continues to be tracked though. #LCSM |
| #LCSM Chat @lcsmchat RT @GeriGerim13: My Dr sugg. I go to Genecist. I had in right lung, then 6 months Later L lung. He believes 2 Primary Cancer, if so, not th… |
 | Treatment for Cancer @cancer_tm RT @LCAorg: Did you know that our nation's #veterans have a higher rate of #lungcancer diagnosis compared with the civilian population? The… |
| #LCSM Chat @lcsmchat RT @kscoon: I think it depends on treatment, there are people who’ve done a rechallenge with shorter success. Or they’ve have success with… |
| #LCSM Chat @lcsmchat RT @debsmithbeach: @JFreemanDaily @GaleGordon19 @JackWestMD I was on a trial (for AZD9291/Tagrisso) for over 2 yrs, ended because of needin… |
| Mary Schroeder @mschroeder3 Is there some place I can find what all the acronyms mean #LCSM |
| Dave Bjork @bjork5 @JFreemanDaily @Kathleen371215 @CathyToohey Hello from Georgetown, MA Kathleen. #LCSM |
| These Are My Scars @TheseAreMyScars @LungCancerFaces @Kathleen371215 @CathyToohey I forgot to mention that part d’oh! Stupid chemo brain #lcsm |
 | Bob Steele @steele_bob Shhh! Quietly sneaking in the back door. #lcsm |
| Janet Freeman-Daily @JFreemanDaily So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my first line radiation is actually a broken rib! Go figure. You know you're a cancer patient when a broken bone is ho-hum. #LCSM |
| #LCSM Chat @lcsmchat Just an FYI, if you have your account set to private, we can't see you. Also, remember to include #LCSM in all your tweets. You'll get used to it. Promise! |
| Danielle Pardue @Actorielle RT @JFreemanDaily: So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my fir… |
| Janet Freeman-Daily @JFreemanDaily @steele_bob Not quiet enough! I see you Bob. #lcsm |
| Danielle Pardue @Actorielle RT @lcsmchat: Just an FYI, if you have your account set to private, we can't see you. Also, remember to include #LCSM in all your tweets. Y… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my fir… |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| Janet Freeman-Daily @JFreemanDaily So, @JackWestMD, what conferences have you been attending? Seems like you're never home anymore! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| Kristine Cherol @kscoon Not necessarily one place- we all learn as we’ve lived this Cancer life. But comment on anyone’s tweet if you don’t know one and I’m sure they’ll tell you!! ❤️ #LCSM https://t.co/cR2f3tBhNV |
 | Ian Pereira @IanJPereira RT @lcsmchat: On Thursday 1/25 at 8 PM Eastern (5 PM Pacific), #LCSM Chat will hold an Open Mic Night to talk about whatever #LungCancer to… |
| Bob Steele @steele_bob @JFreemanDaily @steele_bob Just scrolling through tonight's chat. Sorry I'm late. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| Marcy @Marcy65412751 @kscoon Ok thanks. I forgot what drug this was... @JackWestMD do you know of any patients that went back on a drug after years of being off of it ? #lcsm |
| Ian Pereira @IanJPereira RT @DrMisialek: I recap the newly updated guidelines on molecular testing in lung cancer https://t.co/sEuMlQ8PHY @Pathologists #LCSM https:… |
| Faces of Lung Cancer @LungCancerFaces Anyone coming to my neck of the woods to attend the Targeted Therapies in Lung Cancer meeting in Santa Monica? #lcsm |
| Ian Pereira @IanJPereira RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| H. Jack West, MD @JackWestMD Many review new data coming out. Heading to @PRIMOmeeting next wk. RT @JFreemanDaily: @JackWestMD, what confs have you been attend'g? #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Anyone coming to my neck of the woods to attend the Targeted Therapies in Lung Cancer meeting in Santa Monica? #lcsm |
| #LCSM Chat @lcsmchat RT @JackWestMD: Many review new data coming out. Heading to @PRIMOmeeting next wk. RT @JFreemanDaily: @JackWestMD, what confs have you been… |
| Janet Freeman-Daily @JFreemanDaily OK, if you aren’t going to feed me more questions, I’m posting cat pictures #LCSM https://t.co/nb204qU8j2 |
| These Are My Scars @TheseAreMyScars I have to say goodnightfolks, the doggie have to GO! Have a great week, hope to see you all at the next chat 👋#LCSM |
| Faces of Lung Cancer @LungCancerFaces @TheseAreMyScars Bye, sweetie. #lcsm |
| John from Alabama, The Liger King @JohnLPender Signing off. See ya'll next time. #lcsm |
 | Jackie Fenemore RN, BSc,MSc @JackieFen1 RT @BTOGORG: Congratulations to the authors of our ten runners up conference posters - Dr Banu Rudran, Dr Rebecca Tay, Dr Iain Phillips, Ni… |
| Faces of Lung Cancer @LungCancerFaces @JohnLPender See ya, John. Eat something naughty for me. #lcsm |
| H. Jack West, MD @JackWestMD I'll be there (w/my wife - she likes SoCal,too). MT @LungCancerFaces: Anyone coming to Targeted Therapies in LC mtg in Santa Monica? #lcsm |
| These Are My Scars @TheseAreMyScars @LungCancerFaces Bye Bye ps. I wish I was coming to your neck of the woods, it’s so friggen cold here!!! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @JackWestMD Hope we have decent weather. I know Janet, Lysa B, and Lisa Goldman will be there, too. I'll be there at night for fun. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, plus the advocacy groups send reps #LCSM |
| Kristine Cherol @kscoon I’ve had a hard couple of days, it’s nice to wrap up an evening with some of our lung cancer family. These chats are vital! Join in next time! #lcsm |
| Ian Pereira @IanJPereira @dennycee @JFreemanDaily @GaleGordon19 @JackWestMD Curious - how would/could super responders/long-term survivors be better studied to help more? #lcsm #late |
| Deb Smith 🌊🗽 😷 @debsmithbeach @JFreemanDaily I'm happy it's happening and helping some patients. I'm not yet trying to learn much about it though, because EGFR. #LCSM |
 | diseases_an @diseases_an RT @LungCancerFaces: I call bullshit, too. What say you @KPShare? #tarceva #lungcancer #lcsm https://t.co/cyox4eNmVg |
| Mary Schroeder @mschroeder3 RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, pl… |
| H. Jack West, MD @JackWestMD Done occasionally, but usually any response the second time around is short-lived if cancer previously developed acquired resistance on that agent/combo. #LCSM https://t.co/e9GqCFP3Fk |
| Janet Freeman-Daily @JFreemanDaily Only 10 minutes left in #LCSM chat! Get your questions out before we all turn into pumpkins. |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, pl… |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: @JackWestMD Hope we have decent weather. I know Janet, Lysa B, and Lisa Goldman will be there, too. I'll be there at n… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, pl… |
| #LCSM Chat @lcsmchat RT @kscoon: I’ve had a hard couple of days, it’s nice to wrap up an evening with some of our lung cancer family. These chats are vital! Joi… |
| #LCSM Chat @lcsmchat RT @IanJPereira: @dennycee @JFreemanDaily @GaleGordon19 @JackWestMD Curious - how would/could super responders/long-term survivors be bette… |
| #LCSM Chat @lcsmchat RT @JackWestMD: Done occasionally, but usually any response the second time around is short-lived if cancer previously developed acquired r… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Only 10 minutes left in #LCSM chat! Get your questions out before we all turn into pumpkins. |
| Danielle Pardue @Actorielle RT @JackWestMD: Done occasionally, but usually any response the second time around is short-lived if cancer previously developed acquired r… |
| Kristine Cherol @kscoon Maybe a separate trial for anyone on a TKI after two years? Just to monitor progress and study their genetic makeup for differences vs average responders. #LCSM https://t.co/6iho9SIg8n |
| #LCSM Chat @lcsmchat RT @kscoon: Maybe a separate trial for anyone on a TKI after two years? Just to monitor progress and study their genetic makeup for differe… |
| Janet Freeman-Daily @JFreemanDaily Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practice! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practic… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practic… |
| Dave Bjork @bjork5 Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @LungCancerFaces #lcsm #433aDay |
 | Debbie Machir @ladymachir @LungCancerFaces My thoracic surgeon is in Santa Monica. St. Johns. I was just there Friday for my 6 month checkup, CT scan. Happy to say still clean. I had the VATS procedure. Didn't need chemo or rad. Very blessed. #LCSM |
| Faces of Lung Cancer @LungCancerFaces RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @… |
| Marcy @Marcy65412751 Any nscl squamous cell patients on here ? Follow me so we can chat. #lcsm |
| Treatment for Cancer @cancer_tm RT @JFreemanDaily: @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one rig… |
| #LCSM Chat @lcsmchat RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @… |
| #LCSM Chat @lcsmchat RT @Marcy65412751: Any nscl squamous cell patients on here ? Follow me so we can chat. #lcsm |
| Jim Bordeaux @JBordeaux9 Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm |
| #LCSM Chat @lcsmchat RT @ladymachir: @LungCancerFaces My thoracic surgeon is in Santa Monica. St. Johns. I was just there Friday for my 6 month checkup, CT sca… |
 | Nathan A. Pennell MD, PhD, FASCO @n8pennell RT @JackWestMD: There are many variables. I think the biggest are the "tumor burden" & the underlying aggressiveness of the dzs. Pts w/smal… |
| Mary Schroeder @mschroeder3 What are all the conferences for or have to offer? #LCSM |
| Danielle Pardue @Actorielle RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @… |
| Denise Cutlip @dennycee Michigan signing out! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JBordeaux9 I dug up list of #lungcancer drugs recently approved a year ago, but it's out of date already! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @dennycee Nite! #lcsm |
| Danielle Pardue @Actorielle RT @JBordeaux9: Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm |
| Faces of Lung Cancer @LungCancerFaces I knew that his co-chair, Frank LoBiondo, isn't. I did not know about Rick Nolan. @LCAorg @lgreco_ny #lcsm https://t.co/Piemu6uqRF |
| Dave Bjork @bjork5 RT @JFreemanDaily: Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practic… |
| Janet Freeman-Daily @JFreemanDaily @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's me at the top) https://t.co/lzi13vvtqh #LCSM |
| Danielle Pardue @Actorielle So grateful for this community, my friends. Thank you again! #LCSM |
| H. Jack West, MD @JackWestMD @JFreemanDaily thanks for moderating -- sorry not that much activity, but you tried mightily to get 'em on the dance floor. #lcsm |
| Janet Freeman-Daily @JFreemanDaily We’re in our final minutes - closing thoughts? #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's… |
| #LCSM Chat @lcsmchat RT @JBordeaux9: Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm |
 | Daniel Skipper @DCSkipperDO RT @AMPath: Updated AMP, @Pathologists & @IASLC #lungcancer guideline presents evidence-based molecular biomarker testing standards to impr… |
| Jim Bordeaux @JBordeaux9 @JFreemanDaily @jbordeaux9 I know, things are moving quickly. #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: I knew that his co-chair, Frank LoBiondo, isn't. I did not know about Rick Nolan. @LCAorg @lgreco_ny #lcsm https://t.c… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's… |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD @LungCancerFaces We're just going to have to tap dance faster! #lcsm |
| Faces of Lung Cancer @LungCancerFaces Thanks for herding cats this evening @JFreemanDaily. As always, love this community. See you in two weeks for the next chat. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Thanks for joining #LCSM Chat and Open Mic Night. Hope you enjoyed the community sharing (and hopefully learned something new). Night all! |
| Mary Schroeder @mschroeder3 RT @JFreemanDaily: @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's… |
| Jim Bordeaux @JBordeaux9 @JFreemanDaily @JBordeaux9 I don't mind if it's not a date I'm just trying to get an idea. Can you send it to me #lcsm |
| Bob Steele @steele_bob RT @LungCancerFaces: Thanks for herding cats this evening @JFreemanDaily. As always, love this community. See you in two weeks for the next… |
| Steve Holderness @dark_hawk_98 Thanks Janet for all of your efforts #lcsm |
| Bob Steele @steele_bob RT @Actorielle: So grateful for this community, my friends. Thank you again! #LCSM |
| Janet Freeman-Daily @JFreemanDaily @JBordeaux9 I'll see if I can find it in my mass of files. Might take me awhile, though. #LCSM |
| Jim Bordeaux @JBordeaux9 Good night! #lcsm |
| Mary Schroeder @mschroeder3 @JFreemanDaily Thanks this is all new to me. All seem wonderful survivors. Not sure she will be that lucky #lcsm |
| Jim Bordeaux @JBordeaux9 @JFreemanDaily @JBordeaux9 no hurry just at your convenience. #lcsm |
| Bob Steele @steele_bob RT @kscoon: Sometimes your oncologist can help, but a lot of times is self research. Check out https://t.co/ujqqENa19h #LCSM https://t.co/T… |
| Jim Bordeaux @JBordeaux9 @JBordeaux9 @JFreemanDaily thank you I appreciate it very much #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Thanks for joining #LCSM Chat and Open Mic Night. Hope you enjoyed the community sharing (and hopefully learned somethi… |
| diseases_an @diseases_an RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/act… |
| Janet Freeman-Daily @JFreemanDaily No transcript for 1/25 #LCSM Chat Open Mic Night. We just relaxed and had a good time! |
 | Liz Cramer @elisabethcramer RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights e… |
| Deb Smith 🌊🗽 😷 @debsmithbeach @JFreemanDaily Thanks, Janet! Take care. #LCSM |
 | Kathy Weber @KWebFight Great work @chrisdraft! Thank you #VAPALS for leading the way and being an example in lung cancer screening! We have to catch #lungcancer earlier! #HopeLives #MoreResearchMoreSurvivors https://t.co/Vu6CjDcwkN |
| Kathy Weber @KWebFight Oh Yes! Thank You @DrewMoghanaki for reminding all that this about people! #HopeLives https://t.co/BtpF1yZU97 |
| Bob Steele @steele_bob RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights e… |
| Dave Bjork @bjork5 This! Support #lungcancer research #LCSM https://t.co/wlpkqU5867 |
 | Angie Derrick @AngieBDerrick RT @teamdraft: ATL #lungcancer survivor @pattypoolqueen1 is heading to the ProBowl #2018SuperBowlChallenge #LCSM @WinshipAtEmory @fredkalil… |
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