#LCSM Transcript

Healthcare social media transcript of the #LCSM hashtag.
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Janet Freeman-Daily @JFreemanDaily
Welcome to Open Mic Night on #LCSM Chat!
Denise Cutlip @dennycee
Good evening all. Michigan in the house. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Welcome to Open Mic Night on #LCSM Chat!
Janet Freeman-Daily @JFreemanDaily
Denzie! So glad you joined the chat. It was looking like it would be the Deana and Janet Comedy hour for a second there... #lcsm
Faces of Lung Cancer @LungCancerFaces
@dennycee Hey you! #lcsm
Faces of Lung Cancer @LungCancerFaces
Deana Hendrickson in Los Angeles here. #lcsm
Nancy Marquina @Nmarquina80
Hello everyone! #LCSM
These Are My Scars @TheseAreMyScars
Hey everyone, Toronto in the House. So happy to finally be free!! #LCSM
Janet Freeman-Daily @JFreemanDaily
I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist, owned by two cats #LCSM
Faces of Lung Cancer @LungCancerFaces
@Nmarquina80 Hi Nancy! I'm still angry about the Kaiser Tarceva surcharge. #lcsm
Faces of Lung Cancer @LungCancerFaces
@TheseAreMyScars I'm so glad, too! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/act…
Janet Freeman-Daily @JFreemanDaily
Welcome @Nmarquina80 and @TheseAreMyScars! Now we are five. #lcsm
Upstage Lung Cancer @UpstageLungCanc
RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/act…
Upstage Lung Cancer @UpstageLungCanc
Good evening, #LCSM friends!
Denise Cutlip @dennycee
! So glad you joined the chat. It was looking like it would be the Deana and Janet Comedy hour for a second there... #lcsm
Faces of Lung Cancer @LungCancerFaces
@UpstageLungCanc Hello, lady. #lcsm
Deb Smith @debsmithbeach
Hi, Deb from chilly NH here. Today, I went to see @1111linno at her art show opening! She's amazing in so many ways! #LCSM https://t.co/YDe3t6uVOs
John from Alabama @JohnLPender
Anyone else using TweetChat? It's not showing all the tweets. #lcsm
Lung Cancer Hawaii @LungCancerHawai
I’m here...for now 😃 #LCSM
Faces of Lung Cancer @LungCancerFaces
@JohnLPender Try https://t.co/3LPtQs2zFu #lcsm
Janet Freeman-Daily @JFreemanDaily
Hiya @UpstageLungCanc and @JohnLPender! #lcsm
Charles Ricordel @C_Ricordel
RT @DrRiyazShah: Besse thoughts on subgroups who may not benefit from IO #BTOG2018 #LCSM https://t.co/wM9IGFF3Jj
Faces of Lung Cancer @LungCancerFaces
@LungCancerHawai Hi K! Thanks for the advice earlier. It works! #lcsm
Janet Freeman-Daily @JFreemanDaily
Hey K! @LungCancerHawai #lcsm
Danielle Pardue @Actorielle
Helllllllo friends! Just finishing dinner: taco Tuesday means leftover taco Thursday! Lol! #LCSM
H. Jack West, MD @JackWestMD
Hi, folks! I hope my #LCSM friends are doing well.
Faces of Lung Cancer @LungCancerFaces
@JackWestMD Whoa, it's Jack! #lcsm
John from Alabama @JohnLPender
@LungCancerFaces Switching now... #lcsm
Janet Freeman-Daily @JFreemanDaily
@JackWestMD! Good to see you. Back from your travels? #lcsm
Faces of Lung Cancer @LungCancerFaces
@Actorielle Hi Danielle! How's married life treating you? #lcsm
Janet Freeman-Daily @JFreemanDaily
If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD
Mary Schroeder @mschroeder3
#LCSM chat
Janet Freeman-Daily @JFreemanDaily
@mschroeder3 Welcome Mary! We're a friendly bunch. #lcsm
H. Jack West, MD @JackWestMD
Between travels. Heading to a mtg next week (Maui). RT @JFreemanDaily: @JackWestMD! Good to see you. Back from your travels? #lcsm
Steve Holderness @dark_hawk_98
The Ozarks of Arkansas are now represented. woot woot. LOL #lcsm
Janet Freeman-Daily @JFreemanDaily
Please remember to use #lcsm in all your tweets so others participating in the chat can see them
Faces of Lung Cancer @LungCancerFaces
@debsmithbeach @1111linno Hi Deb! What a fabulous pic! #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/…
Janet Freeman-Daily @JFreemanDaily
@dark_hawk_98 Welcome to the Ozarks! #lcsm
Faces of Lung Cancer @LungCancerFaces
@dark_hawk_98 Hey Steve! Represent! #lcsm
Faces of Lung Cancer @LungCancerFaces
@mschroeder3 Welcome, Mary! #lcsm
Janet Freeman-Daily @JFreemanDaily
If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. BUT feel free to chime in--we don't bite. #lcsm
Timothy Craig Allen @TimAllenMDJD
With you in spirit, #lcsm Will try hard to finish up and join! #goteam #PatientsFirst https://t.co/TXF5O5hWi6
#LCSM Chat @lcsmchat
RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/…
Marcy @Marcy65412751
Hello I am new to this chat! @Actorielle told me about it. My dad has had nscl for 7.5 years (squamous cell). Nice to meet all of you. #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. BUT feel free to chime in--we don'…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them
Lung Cancer Hawaii @LungCancerHawai
@JackWestMD @JFreemanDaily Can I hide in your luggage? Miss Hawaii bunches #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. BUT feel free to chime in--we don'…
Deb Smith @debsmithbeach
@LungCancerFaces @1111linno Linnea's son Peter was the photographer! #LCSM
Danielle Pardue @Actorielle
@Marcy65412751 So happy you are here, my friend! #lcsm
Faces of Lung Cancer @LungCancerFaces
@TimAllenMDJD A big new job can be demanding. Work it! #lcsm
Faces of Lung Cancer @LungCancerFaces
@Marcy65412751 Hi Marcy! Welcome. #lcsm
Janet Freeman-Daily @JFreemanDaily
We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #LCSM
Faces of Lung Cancer @LungCancerFaces
@debsmithbeach How wonderful! #lcsm
H. Jack West, MD @JackWestMD
Will sent Hawaii your regards... RT @LungCancerHawai: @JackWestMD @JFreemanDaily Can I hide in your luggage? Miss Hawaii bunches #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungc
Mary Schroeder @mschroeder3
#LCSM@lcsmchat
Janet Freeman-Daily @JFreemanDaily
We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm
Geri Massa @GeriGerim13
Hello y’all ... #LCSM https://t.co/3aUvNcWk1F
Janet Freeman-Daily @JFreemanDaily
Hey @JackWestMD, send me some ocean wave sound effects ... for @LungCancerHawai too! #lcsm
Faces of Lung Cancer @LungCancerFaces
So glad we found each other. Remember to add #LCSM to your tweets so everyone can pick them up during the chat. xo https://t.co/btsymjyxsh
These Are My Scars @TheseAreMyScars
Q what is in the pipeline after the current second and third gen ALK TKIs? #LCSM
Janet Freeman-Daily @JFreemanDaily
Hi @GeriGerim13 ! #lcsm
Denise Cutlip @dennycee
Who will be at the FtB Lung Cancer Leadership Conference in Feb? #lcsm
Janet Freeman-Daily @JFreemanDaily
For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm
H. Jack West, MD @JackWestMD
There's an Alexa skill for that. Nice to fall asleep to. RT @JFreemanDaily: Hey @JackWestMD, send me some ocean wave sound effects #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind. For instance: IF you could ask a #lungc
Faces of Lung Cancer @LungCancerFaces
@dennycee I didn't know about it. Tell us. #lcsm
Janet Freeman-Daily @JFreemanDaily
@dennycee Didn't realize Free to Breathe had a Lung Cancer Leadership Conference in February. Links? #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: We don't have a scheduled topic tonight. Feel free to say what's on your mind in the world of #lungcancer. #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: So glad we found each other. Remember to add #LCSM to your tweets so everyone can pick them up during the chat. xo htt…
#LCSM Chat @lcsmchat
RT @TheseAreMyScars: Q what is in the pipeline after the current second and third gen ALK TKIs? #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: For instance: IF you could ask a #lungcancer doc any question (but not about your own case), what would you ask? #lcsm
Janet Freeman-Daily @JFreemanDaily
@JackWestMD I listen to "ocean waves" via Alexa every night at bedtime. But Hawaii IRL sounds different. #lcsm
Paula Ashton @paulalv
@dennycee Hi Denise, I believe Lysa is going #lcsm
John from Alabama @JohnLPender
@JackWestMD @JFreemanDaily I wonder if she has a white noise skill. Sure would help me at certain times. #lcsm
H. Jack West, MD @JackWestMD
Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights every 1-2 mo #lcsm
Denise Cutlip @dennycee
@JFreemanDaily @dennycee https://t.co/ubpCYWC1sS #lcsm
Deb Smith @debsmithbeach
I'd like to know about new research, especially related to EGFR/T7-90. #LCSM
Mary Schroeder @mschroeder3
My mother inlaw was just diagnosed with lc and it is spreading new to this #LCSM
Faces of Lung Cancer @LungCancerFaces
@JohnLPender I like recordings of being on a train. Relaxes me. Go figure. @JackWestMD @JFreemanDaily #lcsm
Team Draft @teamdraft
Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScreening #LCSM https://t.co/cjjcQ17plT
Denise Cutlip @dennycee
RT @paulalv: @dennycee Hi Denise, I believe Lysa is going #lcsm. Yeah, Anita is too. #lcsm
Danielle Pardue @Actorielle
RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights e…
Janet Freeman-Daily @JFreemanDaily
Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights e…
#LCSM Chat @lcsmchat
RT @debsmithbeach: I'd like to know about new research, especially related to EGFR/T7-90. #LCSM
Faces of Lung Cancer @LungCancerFaces
@mschroeder3 Remind me. Did I send you some resource links to get you started? #lcsm
Danielle Pardue @Actorielle
@JackWestMD Thank you for saying this. As much as I try to be "hypothetical," I can't deny that this is where my interests lie as well (mom was on an #Avelumab trial for about 28 mos and stopped voluntarily last May for moderate irAEs). #lcsm
Janet Freeman-Daily @JFreemanDaily
@mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm
Denise Cutlip @dennycee
@mschroeder3 best is to get a 2d opinion at NCI designated hospital. Has she started treatment? #lcsm
Danielle Pardue @Actorielle
RT @debsmithbeach: I'd like to know about new research, especially related to EGFR/T7-90. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #…
Marcy @Marcy65412751
Does anybody suffer from lymphedema as a result of their #lungcancer treatments ? #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: Re pipeline for ALK TKIs: researchers are looking at sequencing--some patients become resensitized to TKIs after chemo #…
Janet Freeman-Daily @JFreemanDaily
@debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm
These Are My Scars @TheseAreMyScars
Q- do you happen to know if they are using the chemo in conjunction with the TKIs, or stopping the TKI and doing a few cycles of infusion? Is IO thrown into the mix at all? #lcsm https://t.co/0l0o2ooq9r
Danielle Pardue @Actorielle
RT @JFreemanDaily: @mschroeder3 Sorry to hear your mother has #lungcancer. This is a good place to start: https://t.co/gn7LxTAlm7 #lcsm
#LCSM Chat @lcsmchat
RT @Marcy65412751: Does anybody suffer from lymphedema as a result of their #lungcancer treatments ? #LCSM
Geri Massa @GeriGerim13
Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm
H. Jack West, MD @JackWestMD
Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Like to know research re: EGFR/T790. #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: @debsmithbeach re EGFR/T790M: lots of interest in liquid biopsies to predict response and identify best treatments #lcsm
Danielle Pardue @Actorielle
RT @GeriGerim13: Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM
Denise Cutlip @dennycee
@Marcy65412751 I’ve a phone buddy who does. #lcsm
Janet Freeman-Daily @JFreemanDaily
@Marcy65412751 Not to many #lungcancer patients have arm lymph nodes removed, so lymphedema isn't too common. Confirm @JackWestMD? #lcsm
Danielle Pardue @Actorielle
RT @JackWestMD: Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Like to know research re:…
#LCSM Chat @lcsmchat
.@GaleGordon19 asks: I see that some egfr patients on this go many years without resistance developing. Why does no one study them to see if there is something there that might help others? #lcsm
These Are My Scars @TheseAreMyScars
Yes! I cut out salt and high sodium foods, used compression socks. #lcsm Do you know if it’s medication related or surgically related from the removal of lymph nodes? #lcsm https://t.co/SL6gHhLKST
#LCSM Chat @lcsmchat
RT @TheseAreMyScars: Q- do you happen to know if they are using the chemo in conjunction with the TKIs, or stopping the TKI and doing a few…
H. Jack West, MD @JackWestMD
Yup. RT @JFreemanDaily: @Marcy65412751 Not many LC pts have arm lymph nodes removed, so lymphedema isn't common. Confirm @JackWestMD? #lcsm
#LCSM Chat @lcsmchat
RT @GeriGerim13: Odd ? Any valuable or important info from the different gene tests that are currently available? #LCSM
Danielle Pardue @Actorielle
Yeah--genetic testing is always in the background of my mind as well. Several cases of LC in my family and my husband's family. #LCSM
Deb Smith @debsmithbeach
@JackWestMD Happy to know there are options. I've been on Tagrisso since 10/13, first in a trial @DanaFarber. #LCSM
#LCSM Chat @lcsmchat
RT @JackWestMD: Would expect some info coming out on mut'ns after resistance to osi (Tagrisso) MT @debsmithbeach: Like to know research re:…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @Marcy65412751 Not to many #lungcancer patients have arm lymph nodes removed, so lymphedema isn't too common. Confirm…
Janet Freeman-Daily @JFreemanDaily
@TheseAreMyScars Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chemo. Immunotherapy is more of a "hail Mary" (last resort) for those on TKIs . #LCSM
Gale Gordon @galegordon19
@JFreemanDaily @JackWestMD Hi Why does no one seem interested in studying TKI SUPER RESPONDERS ? Might they not hold a clue that would help others? #LCSM
Danielle Pardue @Actorielle
RT @JackWestMD: Yup. RT @JFreemanDaily: @Marcy65412751 Not many LC pts have arm lymph nodes removed, so lymphedema isn't common. Confirm @…
Deb Smith @debsmithbeach
@JFreemanDaily I've been reading about these and look forward to when they're in regular use. I used to faint when I had a shot, now having blood work, having port accessed, seem benign! #LCSM
These Are My Scars @TheseAreMyScars
Let me rephrase, not lymphedema, but edema yes. While on one of my medications, my legs and hands would swell on a regular basis. #lcsm https://t.co/SL6gHhLKST
H. Jack West, MD @JackWestMD
@debsmithbeach if any place is likely to have novel trial option after progress'n on osimertinib (Tagrisso), it's @DanaFarber (or MGH) #lcsm
Faces of Lung Cancer @LungCancerFaces
Here you go. Some suggestions for newly diagnosed: https://t.co/72ADIdcKMX… and https://t.co/OTTE7hig0b and https://t.co/YecrZSPxKi… and https://t.co/wcBav23gJN… Anything else to suggest #LCSM? https://t.co/QBtHHVUvld
Danielle Pardue @Actorielle
RT @JFreemanDaily: @TheseAreMyScars Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chem…
Inspire @teaminspire
RT @ivybelkins: Thanks for sharing my lung cancer story @UChicagoMed @UChicagoMed. I’m alive today because of recent strides in lung cance…
John from Alabama @JohnLPender
So who still eats a crappy diet? Because I sure haven't stopped. #lcsm
Denise Cutlip @dennycee
@JackWestMD asking for a friend-can a lung tumor be ablated under a local? #lcsm
Janet Freeman-Daily @JFreemanDaily
For the newbies among us, remember to include "#lcsm" in ALL your tweets -- if you don't we won't see your tweets in this chat #lcsm
Danielle Pardue @Actorielle
RT @JackWestMD: @debsmithbeach if any place is likely to have novel trial option after progress'n on osimertinib (Tagrisso), it's @DanaFarb
#LCSM Chat @lcsmchat
RT @GaleGordon19: @JFreemanDaily @JackWestMD Hi Why does no one seem interested in studying TKI SUPER RESPONDERS ? Might they not hold a…
#LCSM Chat @lcsmchat
RT @TheseAreMyScars: Yes! I cut out salt and high sodium foods, used compression socks. #lcsm Do you know if it’s medication related or sur…
#LCSM Chat @lcsmchat
RT @JackWestMD: Yup. RT @JFreemanDaily: @Marcy65412751 Not many LC pts have arm lymph nodes removed, so lymphedema isn't common. Confirm @…
#LCSM Chat @lcsmchat
RT @Actorielle: Yeah--genetic testing is always in the background of my mind as well. Several cases of LC in my family and my husband's fam…
#LCSM Chat @lcsmchat
RT @debsmithbeach: @JackWestMD Happy to know there are options. I've been on Tagrisso since 10/13, first in a trial @DanaFarber. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @TheseAreMyScars Yes to all the above. Sometimes chemo is added to TKI, sometimes TKI is stopped and patient starts chem…
Mary Schroeder @mschroeder3
Anyone have ideas how to help some one with lung cancer. I think she is in denial and won't talk about it #LCSM
#LCSM Chat @lcsmchat
RT @TheseAreMyScars: Let me rephrase, not lymphedema, but edema yes. While on one of my medications, my legs and hands would swell on a reg…
Danielle Pardue @Actorielle
RT @LungCancerFaces: Here you go. Some suggestions for newly diagnosed: https://t.co/72ADIdcKMX… and https://t.co/OTTE7hig0b and https://t.…
#LCSM Chat @lcsmchat
RT @JackWestMD: @debsmithbeach if any place is likely to have novel trial option after progress'n on osimertinib (Tagrisso), it's @DanaFarb
These Are My Scars @TheseAreMyScars
@JFreemanDaily Thank you :) that’s what I’ve heard as well re: IO #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: Here you go. Some suggestions for newly diagnosed: https://t.co/72ADIdcKMX… and https://t.co/OTTE7hig0b and https://t.…
#LCSM Chat @lcsmchat
RT @dennycee: @JackWestMD asking for a friend-can a lung tumor be ablated under a local? #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: For the newbies among us, remember to include "#lcsm" in ALL your tweets -- if you don't we won't see your tweets in thi…
H. Jack West, MD @JackWestMD
Rarely done. If just one spot to treat, usually do radiation. MT @dennycee: @JackWestMD -can a lung tumor be ablated under a local? #lcsm
Lung Cancer Hawaii @LungCancerHawai
I’m newly dx alpha-1 antitrypsin disorder. So I’m a little preoccupied with how this #halflung #hiker will keep up over the next 20 years 😢 #LCSM
#LCSM Chat @lcsmchat
RT @mschroeder3: Anyone have ideas how to help some one with lung cancer. I think she is in denial and won't talk about it #LCSM
Polk SBC - DJPolk @polksbc1
RT @teamdraft: Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScre
Polk SBC - DJPolk @polksbc1
RT @teamdraft: It’s go time! @pattypoolqueen1 @Delta heading down to #ProBowl #Orlando @WinshipAtEmory #2018SuperBowlChallenge #tacklinglun
Denise Cutlip @dennycee
@JackWestMD @dennycee Thx-she’s maxed on radiation. #lcsm
Janet Freeman-Daily @JFreemanDaily
@mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just try to listen to their concerns and let them know they are not alone. #LCSM
Marcy @Marcy65412751
@JFreemanDaily @JackWestMD Oh okay... well he’s had it for over a year and they’re saying it could have been caused by radiation he received to his neck area (spread to lymph nodes) but the swelling is going down. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: Rarely done. If just one spot to treat, usually do radiation. MT @dennycee: @JackWestMD -can a lung tumor be ablated under…
#LCSM Chat @lcsmchat
RT @LungCancerHawai: I’m newly dx alpha-1 antitrypsin disorder. So I’m a little preoccupied with how this #halflung #hiker will keep up ove…
Kristine Cherol @kscoon
My husband really didn’t change his diet. It was more a battle for him to eat whatever he could tolerate with EGFR TKIs and then with chemo. Just happy he was eating. https://t.co/GK4ul9JcO8
H. Jack West, MD @JackWestMD
Great to hear. Few w/longer history! MT @debsmithbeach: @JackWestMD I've been on Tagrisso since 10/13, first in a trial @DanaFarber. #LCSM
Janet Freeman-Daily @JFreemanDaily
@GaleGordon19 @JackWestMD Help me out --- What do you mean by "TKI Super Responder"? #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just…
H. Jack West, MD @JackWestMD
Suspect not a good idea, I'm afraid. Even if someone would. RT @dennycee: @JackWestMD @dennycee Thx-she’s maxed on radiation. #lcsm
Janet Freeman-Daily @JFreemanDaily
@debsmithbeach Ports sure make life easy for scans and blood draws, don't they? #LCSM
Paula Ashton @paulalv
@mschroeder3 Not everyone wants to talk about it. I would simply offer to listen if she needs to talk #lcsm
Faces of Lung Cancer @LungCancerFaces
Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm
Janet Freeman-Daily @JFreemanDaily
@Marcy65412751 @JackWestMD Sounds like he had radiation to lymph nodes--that could cause lymphedema. #LCSM
Deb Smith @debsmithbeach
@JFreemanDaily Yes! I do have to look the other way though.... #LCSM
Kristine Cherol @kscoon
RT @JohnLPender: So who still eats a crappy diet? Because I sure haven't stopped. #lcsm
Danielle Pardue @Actorielle
RT @LungCancerFaces: Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm
Kristine Cherol @kscoon
My husband really didn’t change his diet. It was more a battle for him to eat whatever he could tolerate with EGFR TKIs and then with chemo. Just happy he was eating. #lcsm https://t.co/GK4ul9JcO8
Janet Freeman-Daily @JFreemanDaily
@GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-ROS1 trial, 5 yrs No Evidence of Disease. My stats are being tracked by the trial. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @debsmithbeach Ports sure make life easy for scans and blood draws, don't they? #LCSM
#LCSM Chat @lcsmchat
RT @paulalv: @mschroeder3 Not everyone wants to talk about it. I would simply offer to listen if she needs to talk #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: Hey #LCSM, we have Jack West, MD answering questions from patients. This is your chance... #lcsm
#LCSM Chat @lcsmchat
RT @kscoon: My husband really didn’t change his diet. It was more a battle for him to eat whatever he could tolerate with EGFR TKIs and the…
Jim Bordeaux @JBordeaux9
Better late than never! #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-RO…
Faces of Lung Cancer @LungCancerFaces
@JBordeaux9 Hey Jim! #lcsm
H. Jack West, MD @JackWestMD
Pt w/ (long) complete or near complete response. MT @JFreemanDaily: @GaleGordon19 @JackWestMD What do you mean "TKI Super Responder"? #LCSM
These Are My Scars @TheseAreMyScars
I loooove my port!! I highly recommend getting one if you are going to be on long term treatment. Makes CTs and blood draws so easy! #lcsm https://t.co/256ad3zEI9
Allison Smith @falconalley
RT @teamdraft: Collaboration was the word of the day in Houston @DeptVetAffairs #VAPALS #Tacklinglungcancer #EarlyDetection #LungCancerScre
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @GaleGordon19 @JackWestMD Why do you think such long term responders are not being studied? I'm in the crizotinib-for-RO…
#LCSM Chat @lcsmchat
RT @JackWestMD: Pt w/ (long) complete or near complete response. MT @JFreemanDaily: @GaleGordon19 @JackWestMD What do you mean "TKI Super R…
#LCSM Chat @lcsmchat
RT @TheseAreMyScars: I loooove my port!! I highly recommend getting one if you are going to be on long term treatment. Makes CTs and blood…
Janet Freeman-Daily @JFreemanDaily
@JohnLPender Now that I've been around over 6.5 years, and NED for over 5, I'm having to start eating healthy so I don't develop OTHER health problems on top of cancer! #LCSM
Jim Bordeaux @JBordeaux9
@LungCancerFaces @JBordeaux9 open mic tonight? #lcsm
Deb Smith @debsmithbeach
@mschroeder3 @LungCancerFaces I've also found the American Lung Association and their LungForce program helpful. #LCSM
Kristine Cherol @kscoon
It would be interesting for super responders to be studied specifically to find out if they have different traits that contribute to their long term success. Instead of just being a statistic in a large trial data pool. https://t.co/bm89Olpfao
Faces of Lung Cancer @LungCancerFaces
@JBordeaux9 Yep. Ask away. Or bring up a topic. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @JohnLPender Now that I've been around over 6.5 years, and NED for over 5, I'm having to start eating healthy so I don't…
Janet Freeman-Daily @JFreemanDaily
@Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one right now (inherited EGFR T790M), and it's rare. #LCSM
These Are My Scars @TheseAreMyScars
I have also been called a super responder, 5yrs on Crizo and almost 2 on Lorlatinib. Consequently I have also gained a heck of a lot of weight, I have heard it may be connected. Myth? #LCSM
Marcy @Marcy65412751
Do you guys know of anyone who went back on the same treatment after many years ? My dad may go back on something he took about 4 years ago. I know resistance develops but if it’s been many years since he took it is it still worth a shot? #lcsm
Mary Schroeder @mschroeder3
How do you find out about trials? She has stage 4 Lung cancer had in brain but had surgery and in adrenal gland going to do radiation treatments #LCSM
Nancy Marquina @Nmarquina80
My dad is about to have his 2yr. Cancerversary in Feb. He’s been on #Terceva all this time. #survivor #lcsm
Kristine Cherol @kscoon
It would be interesting for super responders to be studied specifically to find out if they have different traits that contribute to their long term success. Instead of just being a statistic in a large trial data pool. #LCSM https://t.co/bm89Olpfao
Dave Bjork @bjork5
So sorry I’m late. Hey everyone from Boston! #lcsm
Janet Freeman-Daily @JFreemanDaily
#LCSM https://t.co/JgOiXNlm37
Danielle Pardue @Actorielle
@JFreemanDaily Yeah, for sure. Thank you so much! My maternal gma and my mom both had the same super rare subtype. I feel somewhat "cross-haired," lol. #lcsm
Janet Freeman-Daily @JFreemanDaily
@kscoon Be sure to include #LCSM in your tweets so everyone can see what you're saying
Kristine Cherol @kscoon
Sometimes your oncologist can help, but a lot of times is self research. Check out https://t.co/ujqqENa19h #LCSM https://t.co/TpESlgpwbc
#LCSM Chat @lcsmchat
RT @kscoon: It would be interesting for super responders to be studied specifically to find out if they have different traits that contribu…
#LCSM Chat @lcsmchat
RT @Nmarquina80: My dad is about to have his 2yr. Cancerversary in Feb. He’s been on #Terceva all this time. #survivor #lcsm
#LCSM Chat @lcsmchat
RT @mschroeder3: How do you find out about trials? She has stage 4 Lung cancer had in brain but had surgery and in adrenal gland going to d…
#LCSM Chat @lcsmchat
RT @Marcy65412751: Do you guys know of anyone who went back on the same treatment after many years ? My dad may go back on something he too…
#LCSM Chat @lcsmchat
RT @TheseAreMyScars: I have also been called a super responder, 5yrs on Crizo and almost 2 on Lorlatinib. Consequently I have also gained a…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one rig…
These Are My Scars @TheseAreMyScars
@kscoon it’s so good to see you lovely lady 😘 #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @kscoon Be sure to include #LCSM in your tweets so everyone can see what you're saying
Dave Bjork @bjork5
RT @JFreemanDaily: @mschroeder3 It's very difficult to provide info to someone who doesn't want to acknowledge they have #lungcancer. Just…
#LCSM Chat @lcsmchat
RT @kscoon: Sometimes your oncologist can help, but a lot of times is self research. Check out https://t.co/ujqqENa19h #LCSM https://t.co/T…
H. Jack West, MD @JackWestMD
There are many variables. I think the biggest are the "tumor burden" & the underlying aggressiveness of the dzs. Pts w/small amt & slow-growing cancer can go eons before it develops resistance to EGFR TKIs. But not a variable we can control. #LCSM https://t.co/6Y9bBBAGAr
Janet Freeman-Daily @JFreemanDaily
Some trials do subgroup analysis to find why certain groups respond really well. That's how we learned ALK+ patients responded well to crizotinib. #LCSM https://t.co/eFrIAfYrgu
#LCSM Chat @lcsmchat
RT @JackWestMD: There are many variables. I think the biggest are the "tumor burden" & the underlying aggressiveness of the dzs. Pts w/smal…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Some trials do subgroup analysis to find why certain groups respond really well. That's how we learned ALK+ patients re…
Janet Freeman-Daily @JFreemanDaily
@bjork5 Hey Dave! Nice to see you. #lcsm
Kathleen Shepard @kathleen371215
@CathyToohey ? What is #lcsm
Geri Massa @GeriGerim13
My Dr sugg. I go to Genecist. I had in right lung, then 6 months Later L lung. He believes 2 Primary Cancer, if so, not the norm #LCSM
Janet Freeman-Daily @JFreemanDaily
OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm
Kristine Cherol @kscoon
RT @Marcy65412751: Do you guys know of anyone who went back on the same treatment after many years ? My dad may go back on something he too…
Lung Cancer Hawaii @LungCancerHawai
@mschroeder3 Docs searched on my behalf. That was 8 yrs ago and low chance of Sq LC trials. Ended up on “traditional“ platinum chemo #lcsm
Janet Freeman-Daily @JFreemanDaily
@Kathleen371215 @CathyToohey #LCSM stands for Lung Cancer Social Media. We're having a tweetchat right now. Join us!
Dave Bjork @bjork5
@JFreemanDaily Hi Janet. It’s been a while. But I’ve been following your journey on FB 😊 #LCSM
These Are My Scars @TheseAreMyScars
@Kathleen371215 @CathyToohey Lung Cancer Social Media I believe #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm
Faces of Lung Cancer @LungCancerFaces
@Kathleen371215 @CathyToohey #LCSM is a hashtag that stands for Lung Cancer Social Media. It gives lung cancer people a way to connect.
Janet Freeman-Daily @JFreemanDaily
@Nmarquina80 Congrats to your dad! Hope Tarceva keeps working a loooooong time for him. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @Kathleen371215 @CathyToohey #LCSM stands for Lung Cancer Social Media. We're having a tweetchat right now. Join us!
#LCSM Chat @lcsmchat
RT @JFreemanDaily: OK, things are slowing down. What do you want to know about Immunotherapy? #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerHawai: @mschroeder3 Docs searched on my behalf. That was 8 yrs ago and low chance of Sq LC trials. Ended up on “traditional“…
Danielle Pardue @Actorielle
RT @LungCancerFaces: @Kathleen371215 @CathyToohey #LCSM is a hashtag that stands for Lung Cancer Social Media. It gives lung cancer people…
Kristine Cherol @kscoon
I think it depends on treatment, there are people who’ve done a rechallenge with shorter success. Or they’ve have success with TKI after chemo gets them to NED. Also depending on mutation, can combine prior med with new one. #LCSM https://t.co/2zmXubGAXL
#LCSM Chat @lcsmchat
RT @LungCancerFaces: @Kathleen371215 @CathyToohey #LCSM is a hashtag that stands for Lung Cancer Social Media. It gives lung cancer people…
Deb Smith @debsmithbeach
@JFreemanDaily @GaleGordon19 @JackWestMD I was on a trial (for AZD9291/Tagrisso) for over 2 yrs, ended because of needing SBRT on one new nodule. My info from blood draws and scans continues to be tracked though. #LCSM
#LCSM Chat @lcsmchat
RT @GeriGerim13: My Dr sugg. I go to Genecist. I had in right lung, then 6 months Later L lung. He believes 2 Primary Cancer, if so, not th…
Treatment for Cancer @cancer_tm
RT @LCAorg: Did you know that our nation's #veterans have a higher rate of #lungcancer diagnosis compared with the civilian population? The…
#LCSM Chat @lcsmchat
RT @kscoon: I think it depends on treatment, there are people who’ve done a rechallenge with shorter success. Or they’ve have success with…
#LCSM Chat @lcsmchat
RT @debsmithbeach: @JFreemanDaily @GaleGordon19 @JackWestMD I was on a trial (for AZD9291/Tagrisso) for over 2 yrs, ended because of needin…
Mary Schroeder @mschroeder3
Is there some place I can find what all the acronyms mean #LCSM
Dave Bjork @bjork5
@JFreemanDaily @Kathleen371215 @CathyToohey Hello from Georgetown, MA Kathleen. #LCSM
Bob Steele @steele_bob
Shhh! Quietly sneaking in the back door. #lcsm
These Are My Scars @TheseAreMyScars
@LungCancerFaces @Kathleen371215 @CathyToohey I forgot to mention that part d’oh! Stupid chemo brain #lcsm
Janet Freeman-Daily @JFreemanDaily
So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my first line radiation is actually a broken rib! Go figure. You know you're a cancer patient when a broken bone is ho-hum. #LCSM
#LCSM Chat @lcsmchat
Just an FYI, if you have your account set to private, we can't see you. Also, remember to include #LCSM in all your tweets. You'll get used to it. Promise!
Danielle Pardue @Actorielle
RT @JFreemanDaily: So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my fir…
Janet Freeman-Daily @JFreemanDaily
@steele_bob Not quiet enough! I see you Bob. #lcsm
Danielle Pardue @Actorielle
RT @lcsmchat: Just an FYI, if you have your account set to private, we can't see you. Also, remember to include #LCSM in all your tweets. Y…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: So I learned something new at my last clinical trial visit. Apparently that "sore spot" I've had in my back since my fir…
Janet Freeman-Daily @JFreemanDaily
@mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm
Janet Freeman-Daily @JFreemanDaily
So, @JackWestMD, what conferences have you been attending? Seems like you're never home anymore! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm
Kristine Cherol @kscoon
Not necessarily one place- we all learn as we’ve lived this Cancer life. But comment on anyone’s tweet if you don’t know one and I’m sure they’ll tell you!! ❤️ #LCSM https://t.co/cR2f3tBhNV
Ian Pereira @IanJPereira
RT @lcsmchat: On Thursday 1/25 at 8 PM Eastern (5 PM Pacific), #LCSM Chat will hold an Open Mic Night to talk about whatever #LungCancer to…
Bob Steele @steele_bob
@JFreemanDaily @steele_bob Just scrolling through tonight's chat. Sorry I'm late. #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm
Marcy @Marcy65412751
@kscoon Ok thanks. I forgot what drug this was... @JackWestMD do you know of any patients that went back on a drug after years of being off of it ? #lcsm
Ian Pereira @IanJPereira
RT @DrMisialek: I recap the newly updated guidelines on molecular testing in lung cancer https://t.co/sEuMlQ8PHY @Pathologists #LCSM https:…
Faces of Lung Cancer @LungCancerFaces
Anyone coming to my neck of the woods to attend the Targeted Therapies in Lung Cancer meeting in Santa Monica? #lcsm
Ian Pereira @IanJPereira
RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm
H. Jack West, MD @JackWestMD
Many review new data coming out. Heading to @PRIMOmeeting next wk. RT @JFreemanDaily: @JackWestMD, what confs have you been attend'g? #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: Anyone coming to my neck of the woods to attend the Targeted Therapies in Lung Cancer meeting in Santa Monica? #lcsm
Janet Freeman-Daily @JFreemanDaily
OK, if you aren’t going to feed me more questions, I’m posting cat pictures #LCSM https://t.co/nb204qU8j2
#LCSM Chat @lcsmchat
RT @JackWestMD: Many review new data coming out. Heading to @PRIMOmeeting next wk. RT @JFreemanDaily: @JackWestMD, what confs have you been…
These Are My Scars @TheseAreMyScars
I have to say goodnightfolks, the doggie have to GO! Have a great week, hope to see you all at the next chat 👋#LCSM
Faces of Lung Cancer @LungCancerFaces
@TheseAreMyScars Bye, sweetie. #lcsm
John from Alabama @JohnLPender
Signing off. See ya'll next time. #lcsm
Jackie Fenemore RN, MSc @JackieFen1
RT @BTOGORG: Congratulations to the authors of our ten runners up conference posters - Dr Banu Rudran, Dr Rebecca Tay, Dr Iain Phillips, Ni…
H. Jack West, MD @JackWestMD
I'll be there (w/my wife - she likes SoCal,too). MT @LungCancerFaces: Anyone coming to Targeted Therapies in LC mtg in Santa Monica? #lcsm
Faces of Lung Cancer @LungCancerFaces
@JohnLPender See ya, John. Eat something naughty for me. #lcsm
These Are My Scars @TheseAreMyScars
@LungCancerFaces Bye Bye ps. I wish I was coming to your neck of the woods, it’s so friggen cold here!!! #lcsm
Faces of Lung Cancer @LungCancerFaces
@JackWestMD Hope we have decent weather. I know Janet, Lysa B, and Lisa Goldman will be there, too. I'll be there at night for fun. #lcsm
Janet Freeman-Daily @JFreemanDaily
@LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, plus the advocacy groups send reps #LCSM
Kristine Cherol @kscoon
I’ve had a hard couple of days, it’s nice to wrap up an evening with some of our lung cancer family. These chats are vital! Join in next time! #lcsm
Ian Pereira @IanJPereira
@dennycee @JFreemanDaily @GaleGordon19 @JackWestMD Curious - how would/could super responders/long-term survivors be better studied to help more? #lcsm #late
Deb Smith @debsmithbeach
@JFreemanDaily I'm happy it's happening and helping some patients. I'm not yet trying to learn much about it though, because EGFR. #LCSM
diseases_an @diseases_an
RT @LungCancerFaces: I call bullshit, too. What say you @KPShare? #tarceva #lungcancer #lcsm https://t.co/cyox4eNmVg
Mary Schroeder @mschroeder3
RT @JFreemanDaily: @mschroeder3 You can find a list of commonly-used #lungcancer acronyms here: https://t.co/xH9Lq4Gd6U #lcsm
Faces of Lung Cancer @LungCancerFaces
RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, pl…
H. Jack West, MD @JackWestMD
Done occasionally, but usually any response the second time around is short-lived if cancer previously developed acquired resistance on that agent/combo. #LCSM https://t.co/e9GqCFP3Fk
Janet Freeman-Daily @JFreemanDaily
Only 10 minutes left in #LCSM chat! Get your questions out before we all turn into pumpkins.
Danielle Pardue @Actorielle
RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, pl…
#LCSM Chat @lcsmchat
RT @LungCancerFaces: @JackWestMD Hope we have decent weather. I know Janet, Lysa B, and Lisa Goldman will be there, too. I'll be there at n…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @LungCancerFaces Patient tweeps at Targeted Therapies conference: Lisa Buonanno, Lisa Goldman, Allen Fremont, and me, pl…
#LCSM Chat @lcsmchat
RT @kscoon: I’ve had a hard couple of days, it’s nice to wrap up an evening with some of our lung cancer family. These chats are vital! Joi…
#LCSM Chat @lcsmchat
RT @IanJPereira: @dennycee @JFreemanDaily @GaleGordon19 @JackWestMD Curious - how would/could super responders/long-term survivors be bette…
#LCSM Chat @lcsmchat
RT @JackWestMD: Done occasionally, but usually any response the second time around is short-lived if cancer previously developed acquired r…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Only 10 minutes left in #LCSM chat! Get your questions out before we all turn into pumpkins.
Danielle Pardue @Actorielle
RT @JackWestMD: Done occasionally, but usually any response the second time around is short-lived if cancer previously developed acquired r…
Kristine Cherol @kscoon
Maybe a separate trial for anyone on a TKI after two years? Just to monitor progress and study their genetic makeup for differences vs average responders. #LCSM https://t.co/6iho9SIg8n
#LCSM Chat @lcsmchat
RT @kscoon: Maybe a separate trial for anyone on a TKI after two years? Just to monitor progress and study their genetic makeup for differe…
Janet Freeman-Daily @JFreemanDaily
Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practice! #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practic…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practic…
Dave Bjork @bjork5
Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @LungCancerFaces #lcsm #433aDay
Debbie Machir @ladymachir
@LungCancerFaces My thoracic surgeon is in Santa Monica. St. Johns. I was just there Friday for my 6 month checkup, CT scan. Happy to say still clean. I had the VATS procedure. Didn't need chemo or rad. Very blessed. #LCSM
Faces of Lung Cancer @LungCancerFaces
RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @…
Marcy @Marcy65412751
Any nscl squamous cell patients on here ? Follow me so we can chat. #lcsm
Treatment for Cancer @cancer_tm
RT @JFreemanDaily: @Actorielle Re genetic testing--hope we identify more inherited genes linked with #lungcancer risk. Only know of one rig…
#LCSM Chat @lcsmchat
RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @…
#LCSM Chat @lcsmchat
RT @Marcy65412751: Any nscl squamous cell patients on here ? Follow me so we can chat. #lcsm
Jim Bordeaux @JBordeaux9
Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm
#LCSM Chat @lcsmchat
RT @ladymachir: @LungCancerFaces My thoracic surgeon is in Santa Monica. St. Johns. I was just there Friday for my 6 month checkup, CT sca…
Nathan A. Pennell MD, PhD @n8pennell
RT @JackWestMD: There are many variables. I think the biggest are the "tumor burden" & the underlying aggressiveness of the dzs. Pts w/smal…
Mary Schroeder @mschroeder3
What are all the conferences for or have to offer? #LCSM
Danielle Pardue @Actorielle
RT @bjork5: Did I hear that @USRepRickNolan is not running for re-election? If true what will happen to the #LungCancer caucus? @kabensen @…
Denise Cutlip @dennycee
Michigan signing out! #lcsm
Janet Freeman-Daily @JFreemanDaily
@JBordeaux9 I dug up list of #lungcancer drugs recently approved a year ago, but it's out of date already! #lcsm
Janet Freeman-Daily @JFreemanDaily
@dennycee Nite! #lcsm
Danielle Pardue @Actorielle
RT @JBordeaux9: Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm
Faces of Lung Cancer @LungCancerFaces
I knew that his co-chair, Frank LoBiondo, isn't. I did not know about Rick Nolan. @LCAorg @lgreco_ny #lcsm https://t.co/Piemu6uqRF
Dave Bjork @bjork5
RT @JFreemanDaily: Glad to see so many new people dipping their toes into the brave new world of tweetchats. This is a good time to practic…
Janet Freeman-Daily @JFreemanDaily
@mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's me at the top) https://t.co/lzi13vvtqh #LCSM
Danielle Pardue @Actorielle
So grateful for this community, my friends. Thank you again! #LCSM
H. Jack West, MD @JackWestMD
@JFreemanDaily thanks for moderating -- sorry not that much activity, but you tried mightily to get 'em on the dance floor. #lcsm
Janet Freeman-Daily @JFreemanDaily
We’re in our final minutes - closing thoughts? #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's…
#LCSM Chat @lcsmchat
RT @JBordeaux9: Where would be a good accurate place to find a timeline of medications approved since 2014? #lcsm
Daniel Skipper @DCSkipperDO
RT @AMPath: Updated AMP, @Pathologists & @IASLC #lungcancer guideline presents evidence-based molecular biomarker testing standards to impr…
Jim Bordeaux @JBordeaux9
@JFreemanDaily @jbordeaux9 I know, things are moving quickly. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: I knew that his co-chair, Frank LoBiondo, isn't. I did not know about Rick Nolan. @LCAorg @lgreco_ny #lcsm https://t.c…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's…
Janet Freeman-Daily @JFreemanDaily
@JackWestMD @LungCancerFaces We're just going to have to tap dance faster! #lcsm
Faces of Lung Cancer @LungCancerFaces
Thanks for herding cats this evening @JFreemanDaily. As always, love this community. See you in two weeks for the next chat. #lcsm
Janet Freeman-Daily @JFreemanDaily
Thanks for joining #LCSM Chat and Open Mic Night. Hope you enjoyed the community sharing (and hopefully learned something new). Night all!
Mary Schroeder @mschroeder3
RT @JFreemanDaily: @mschroeder3 Here's an article about what #lungcancer advocates can learn by attending medical conferences. (Yes, that's…
Jim Bordeaux @JBordeaux9
@JFreemanDaily @JBordeaux9 I don't mind if it's not a date I'm just trying to get an idea. Can you send it to me #lcsm
Bob Steele @steele_bob
RT @LungCancerFaces: Thanks for herding cats this evening @JFreemanDaily. As always, love this community. See you in two weeks for the next…
Steve Holderness @dark_hawk_98
Thanks Janet for all of your efforts #lcsm
Bob Steele @steele_bob
RT @Actorielle: So grateful for this community, my friends. Thank you again! #LCSM
Janet Freeman-Daily @JFreemanDaily
@JBordeaux9 I'll see if I can find it in my mass of files. Might take me awhile, though. #LCSM
Jim Bordeaux @JBordeaux9
Good night! #lcsm
Mary Schroeder @mschroeder3
@JFreemanDaily Thanks this is all new to me. All seem wonderful survivors. Not sure she will be that lucky #lcsm
Jim Bordeaux @JBordeaux9
@JFreemanDaily @JBordeaux9 no hurry just at your convenience. #lcsm
Bob Steele @steele_bob
RT @kscoon: Sometimes your oncologist can help, but a lot of times is self research. Check out https://t.co/ujqqENa19h #LCSM https://t.co/T…
Jim Bordeaux @JBordeaux9
@JBordeaux9 @JFreemanDaily thank you I appreciate it very much #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: Thanks for joining #LCSM Chat and Open Mic Night. Hope you enjoyed the community sharing (and hopefully learned somethi…
diseases_an @diseases_an
RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/act…
Janet Freeman-Daily @JFreemanDaily
No transcript for 1/25 #LCSM Chat Open Mic Night. We just relaxed and had a good time!
Liz Cramer 🧬 @elisabethcramer
RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights e…
Deb Smith @debsmithbeach
@JFreemanDaily Thanks, Janet! Take care. #LCSM
Kathy Weber @KWebFight
Great work @chrisdraft! Thank you #VAPALS for leading the way and being an example in lung cancer screening! We have to catch #lungcancer earlier! #HopeLives #MoreResearchMoreSurvivors https://t.co/Vu6CjDcwkN
Kathy Weber @KWebFight
Oh Yes! Thank You @DrewMoghanaki for reminding all that this about people! #HopeLives https://t.co/BtpF1yZU97
Bob Steele @steele_bob
RT @JackWestMD: Biggest advances this yr will likely be ongoing big trial results in immunotherapy in advanced NSCLC. expect new insights e…
Dave Bjork @bjork5
This! Support #lungcancer research #LCSM https://t.co/wlpkqU5867
Angie Derrick @AngieBDerrick
RT @teamdraft: ATL #lungcancer survivor @pattypoolqueen1 is heading to the ProBowl #2018SuperBowlChallenge #LCSM @WinshipAtEmory @fredkalil
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