#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
| @dennycee @BrendonStilesMD I get 500 Internal Server Error on phone and computer #lcsm | |
 | Janet Freeman-Daily @JFreemanDaily @steele_bob https://t.co/BnD7pcbSiT will not allow tweets over 140 characters. Does tweetdeck? #LCSM |
 | Brendon Stiles @BrendonStilesMD Hi everyone! Welcome to tonight" #lcsm tweet chat! |
 | NCI Cancer Stats @NCICancerStats In 2015, there were over 500,000 people living with lung and bronchus cancer in the US. Find more stats here: https://t.co/Uod1BWUmtw #LCSM https://t.co/eaBxQwxlbw |
 | #LCSM Chat @lcsmchat @dennycee @BrendonStilesMD Try https://t.co/iYgAhkZ9LG instead. #lcsm |
| Brendon Stiles @BrendonStilesMD You can read about how to participate in the chat at https://t.co/93SziNyHT6 #lcsm |
 | Aparna Hegde, MD @notahedge Hello from Houston #lcsm |
| Janet Freeman-Daily @JFreemanDaily @BrendonStilesMD Hiya Brendon! Sitting in my Washington DC hotel room! #LCSM |
| Brendon Stiles @BrendonStilesMD We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
| Brendon Stiles @BrendonStilesMD @JFreemanDaily Hi!!!! Productively I hope! #lcsm |
| Brendon Stiles @BrendonStilesMD I’m your moderator Brendon Stiles, a thoracic surgeon, researcher, patient advocate. People sometimes travel to see me! #lcsm |
| #LCSM Chat @lcsmchat @notahedge Welcome! Thanks for joining us this evening. #lcsm |
 | Andrea Borondy Kitts @findlungcancer Andrea - retired engineer turned patient advocate after losing my husband to #lungcancer #LCSM |
| Brendon Stiles @BrendonStilesMD @dennycee Thanks for joining! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: You can read about how to participate in the chat at https://t.co/93SziNyHT6 #lcsm |
| Brendon Stiles @BrendonStilesMD I would like to disclose conflicts – I chair @lung_fund & have worked with @astrazeneca & @medtronic. My wife worked @pfizer and now @ppdCRO. These don’t affect opinions expressed tonight. #lcsm |
 | JonathanTaylor_Classical_Guitar_Mastery @JTGuitarMastery 1980s #Pinterest #art #rockstar #multiplesclerosis #ms #multiplesclerosisfighter #producer #recordlabel #recordlabelsubmissions #marsamerica #soundcloud #musicproducer #musicbusiness #distribution #musicindustry #underground #artist #paris #roc… https://t.co/mv817gAWDE https://t.co/azVWPFalU3 |
| Andrea Borondy Kitts @findlungcancer @JFreemanDaily @BrendonStilesMD I just missed you in DC Janet - #bummer #lcsm |
| Janet Freeman-Daily @JFreemanDaily Janet Freeman-Daily here in DC--writer, speaker, science geek, lung cancer patient/activist. Just participated in a meeting at the National Academy of Medicine! #LCSM |
| Brendon Stiles @BrendonStilesMD In this week’s chat we hope to explore why cancer patients do or should travel for care. #lcsm https://t.co/X8h0RTd0qD |
| #LCSM Chat @lcsmchat @BrendonStilesMD @JFreemanDaily She's on the phone with @LungCancerFaces while tweeting. Now, that's productivity! #lcsm |
| Brendon Stiles @BrendonStilesMD @findlungcancer @JFreemanDaily Hi Andrea! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: I’m your moderator Brendon Stiles, a thoracic surgeon, researcher, patient advocate. People sometimes travel to see m… |
 | Lisa Moran @plh4lisa @BrendonStilesMD Hello. Stage4 nsclc egfr t790m+ patient. Dx 2015. Currently stable #LCSM |
| Andrea Borondy Kitts @findlungcancer U R at the top of the list #lcsm |
| #LCSM Chat @lcsmchat [REDACTED USER] Welcome! #lcsm |
| Brendon Stiles @BrendonStilesMD We are also curious if the “volume-outcome” effect is real and whether doctors and patients support regionalization of cancer care. #lcsm |
| #LCSM Chat @lcsmchat @findlungcancer Hi Andrea! #lcsm |
| Brendon Stiles @BrendonStilesMD @plh4lisa Hi Lisa! Thanks for joining! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: I would like to disclose conflicts – I chair @lung_fund & have worked with @astrazeneca & @medtronic. My wife worked @… |
| Janet Freeman-Daily @JFreemanDaily @findlungcancer @BrendonStilesMD I was amazed at the number of my friends who were in DC at the same time! #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: In this week’s chat we hope to explore why cancer patients do or should travel for care. #lcsm https://t.co/X8h0RTd0qD |
| Brendon Stiles @BrendonStilesMD We will get started soon. First, a few reminders…#lcsm |
| #LCSM Chat @lcsmchat @plh4lisa @BrendonStilesMD Hey Lisa! #lcsm |
| Brendon Stiles @BrendonStilesMD Please remember to include #LCSM in ALL your tweets so the other chat participants will see them during the chat #lcsm |
| #LCSM Chat @lcsmchat @wi_qiong @BrendonStilesMD Welcome, Christine! #lcsm |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here #lcsm |
| Brendon Stiles @BrendonStilesMD @wi_qiong Hi Christine! Love that you are here! #lcsm |
| Brendon Stiles @BrendonStilesMD If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm |
| Brendon Stiles @BrendonStilesMD I will announce FIVE topics (T1 T2 etc). Please label your responses with T1, T2, etc to make transcript easier to follow. #lcsm |
| @JohnLPender https://t.co/PT2tdeTqH1 is working. #lcsm | |
 | Laura Greco @lgreco_ny Laura here! #lcsm |
| @LungCancerFaces Deana coming at you from chilly Los Angeles. I'll be manning the @lcsmchat account tonight. #lcsm | |
| Brendon Stiles @BrendonStilesMD We’ll start with Topic T1 in a minute. Hope to have a diverse group here tonight. Thanks to everyone for joining. #lcsm |
| Brendon Stiles @BrendonStilesMD @JohnLPender The problem solver! #lcsm |
| #LCSM Chat @lcsmchat @lgreco_ny Hi Laura! #lcsm |
| Brendon Stiles @BrendonStilesMD T1. Do you travel far for cancer care? If so, why? #lcsm |
| Lisa Moran @plh4lisa RT @BrendonStilesMD: We’ll start with Topic T1 in a minute. Hope to have a diverse group here tonight. Thanks to everyone for joining. #l… |
| #LCSM Chat @lcsmchat RT @JohnLPender: https://t.co/PT2tdeTqH1 is working. #lcsm |
| #LCSM Chat @lcsmchat @TimAllenMDJD Hey Tim! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: Please remember to include #LCSM in ALL your tweets so the other chat participants will see them during the chat #lcsm |
| Brendon Stiles @BrendonStilesMD @TimAllenMDJD Thanks for joining. I would travel for a great pathologist. #lcsm |
| Brendon Stiles @BrendonStilesMD @LungCancerSux Hooray! Thanks for being here! #lcsm |
| #LCSM Chat @lcsmchat [REDACTED USER] Hi Margot! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Howdy #lcsm |
| Brendon Stiles @BrendonStilesMD T1. Great article from the group at Yale: https://t.co/gm0F5Y11nq #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. Do you travel far for cancer care? If so, why? #lcsm |
 | Danielle Pardue @Actorielle RT @BrendonStilesMD: T1. Do you travel far for cancer care? If so, why? #lcsm |
 | Don Stranathan @don450sl @lcsmchat Welcome everyone #LCSM |
| Andrea Borondy Kitts @findlungcancer T1 My husband did not travel for care but did travel for 2nd opinion & genetic testing. He was able to get the recommended care locally #lcsm |
| Danielle Pardue @Actorielle Hi, my friends! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: @TimAllenMDJD Thanks for joining. I would travel for a great pathologist. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you! #lcsm |
| Laura Greco @lgreco_ny @BrendonStilesMD https://t.co/C829coxaub? I was having issues as well. #lcsm |
| Brendon Stiles @BrendonStilesMD T1. Here they show thresholds for travel. #lcsm https://t.co/L1AibpnRP7 |
 | Sanjay Mukhopadhyay @smlungpathguy #lcsm just lurking and learning |
 | Lung Cancer Sux @LungCancerSux Hi All. Glorianne from CT. Patient Advocate since hubby's dx in 2010 #lcsm |
| Danielle Pardue @Actorielle RT @findlungcancer: T1 My husband did not travel for care but did travel for 2nd opinion & genetic testing. He was able to get the recommen… |
| Lisa Moran @plh4lisa @BrendonStilesMD T1: I don't have to travel far. I'm just an hour away from my onc at @CUCancerCenter #lcsm |
| Brendon Stiles @BrendonStilesMD @findlungcancer I think this is often a great strategy! #lcsm |
| Andrea Borondy Kitts @findlungcancer luckily can do pathology "remotely" so access for all #lcsm |
| #LCSM Chat @lcsmchat @don450sl Hey Don! Great to "see" you. #lcsm |
| Brendon Stiles @BrendonStilesMD @don450sl @lcsmchat Hi Don! #lcsm |
| Danielle Pardue @Actorielle RT @BrendonStilesMD: T1. Here they show thresholds for travel. #lcsm https://t.co/L1AibpnRP7 |
| #LCSM Chat @lcsmchat RT @findlungcancer: T1 My husband did not travel for care but did travel for 2nd opinion & genetic testing. He was able to get the recommen… |
| #LCSM Chat @lcsmchat @Actorielle Hey lady! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. Here they show thresholds for travel. #lcsm https://t.co/L1AibpnRP7 |
| Brendon Stiles @BrendonStilesMD T1. Curiously, they put “cure” in the supplemental data. Seems important. #lcsm https://t.co/xtMuBYqt6N |
| #LCSM Chat @lcsmchat @smlungpathguy We love lurkers! Welcome. #lcsm |
| Brendon Stiles @BrendonStilesMD @findlungcancer I was going to say..."or at least send my slides"! #lcsm |
| #LCSM Chat @lcsmchat @LungCancerSux Welcome! #lcsm |
| Brendon Stiles @BrendonStilesMD @smlungpathguy thanks for hanging around! #lcsm |
| Andrea Borondy Kitts @findlungcancer T1 yes allows people to be more comfortable at home with their social support systems intact #lcsm |
| Don Stranathan @don450sl @BrendonStilesMD @lcsmchat T1 Tbanks for sharing #LCSM |
| Brendon Stiles @BrendonStilesMD @plh4lisa @CUCancerCenter T1. Do most people consider "an hour" far? I would have thought so. #lcsm |
| #LCSM Chat @lcsmchat RT @findlungcancer: T1 yes allows people to be more comfortable at home with their social support systems intact #lcsm https://t.co/RIfXtEE… |
| Brendon Stiles @BrendonStilesMD T1. You can find great docs anywhere, but I do think specialty, high volume multidisciplinary cancer practices can provide some advantages. #lcsm |
| Andrea Borondy Kitts @findlungcancer T1 That was implied in my response thank you for clarifying #lcsm |
| Brendon Stiles @BrendonStilesMD T1. To me, this is particularly true of technical and equipment dependent specialties such as #surgery and #radonc #lcsm |
| Lisa Moran @plh4lisa @BrendonStilesMD @CUCancerCenter Not far compared to hours/days of driving or flying to care. #lcsm |
| Brendon Stiles @BrendonStilesMD T1. High volume oncology practices also can make a big difference and may have more access to or knowledge of clinical trials. #lcsm |
| Danielle Pardue @Actorielle @BrendonStilesMD @plh4lisa @CUCancerCenter We go exactly an hour any time we need to go to the parent hospital of our satellite. An hour is more or less expected in my town, because that's the length of time to the next sizeable city. But: most of our appts and needs can be handled locally at the satellite. #lcsm |
| @jmeberth #LCSM Hi everyone, cancer researcher from South Carolina on the chat line! very much looking forward to the topic tonight. | |
| Don Stranathan @don450sl @lcsmchat Still trying to navigate Twitter #LCSM |
| Janet Freeman-Daily @JFreemanDaily @BrendonStilesMD @plh4lisa @CUCancerCenter T1: I travel 1000+ miles (according to Alaska Airlines) from Seattle to Denver--because that was the closest location of the targeted therapy clinical trial I needed. #lcsm |
| Andrea Borondy Kitts @findlungcancer T1 I would say one hour is local - I think of travel as something hard to go and come back the same day i.e. need an overnight stay #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Absolutely! #PatientCenteredCare #WhyPathologistsMatter #PatientsFirst #Telemedicine #Telehealth #lcsm |
| Lung Cancer Sux @LungCancerSux T1 we didn't travel far for chemo RT. Biopsy local also. There were no actionable markers to test for at that time #lcsm |
| Brendon Stiles @BrendonStilesMD T1. But…sometimes I think best models are those in which doctors travel to patients for routine consults! Specialty inpatient or highly technical care can then happen at regional center of excellence. #lcsm |
| Danielle Pardue @Actorielle RT @BrendonStilesMD: T1. High volume oncology practices also can make a big difference and may have more access to or knowledge of clinica… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #DigitalPathology FTW #lcsm |
| @LungCancerFaces @BrendonStilesMD @plh4lisa @CUCancerCenter T1: In So Cal, it can easily take an hour to get to our major cancer centers. #lcsm | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T1. But…sometimes I think best models are those in which doctors travel to patients for routine consults! Specialty… |
| Janet Freeman-Daily @JFreemanDaily @BrendonStilesMD @plh4lisa @CUCancerCenter T1: At home in the Puget Sound area, I travel 30 miles one way to see my pulmonologist and oncologist, but 4 miles for labs. It's complicated. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @LungCancerSux: T1 we didn't travel far for chemo RT. Biopsy local also. There were no actionable markers to test for at that time #lc… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: I travel 1000+ miles (according to Alaska Airlines) from Seattle to Denv… |
| Brendon Stiles @BrendonStilesMD @jmeberth Awesome! thanks for joining. #lcsm |
| #LCSM Chat @lcsmchat @don450sl You're doing fine, Don. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T1. High volume oncology practices also can make a big difference and may have more access to or knowledge of clinica… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. You can find great docs anywhere, but I do think specialty, high volume multidisciplinary cancer practices can pr… |
| Brendon Stiles @BrendonStilesMD T1. Where are the oncologists anyway? Traveling? #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. To me, this is particularly true of technical and equipment dependent specialties such as #surgery and #radonc #l… |
| Andrea Borondy Kitts @findlungcancer T1 another option is telehealth or virtual care for some visits #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: @BrendonStilesMD @plh4lisa @CUCancerCenter We go exactly an hour any time we need to go to the parent hospital of our satel… |
| Laura Greco @lgreco_ny t1: I live in a rural area. I travel 3.5- hours each way for care. I don't even have a local oncologist. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: I travel 1000+ miles (according to Alaska Airlines) from Seattle to Denv… |
| #LCSM Chat @lcsmchat RT @findlungcancer: T1 I would say one hour is local - I think of travel as something hard to go and come back the same day i.e. need an ov… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @findlungcancer: T1 another option is telehealth or virtual care for some visits #lcsm https://t.co/X46duykxkg |
| #LCSM Chat @lcsmchat RT @LungCancerSux: T1 we didn't travel far for chemo RT. Biopsy local also. There were no actionable markers to test for at that time #lc… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. But…sometimes I think best models are those in which doctors travel to patients for routine consults! Specialty… |
| Brendon Stiles @BrendonStilesMD Getting ready to move to T2. Is there data to support what we do? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lgreco_ny: t1: I live in a rural area. I travel 3.5- hours each way for care. I don't even have a local oncologist. #lcsm |
| Lung Cancer Sux @LungCancerSux T1: chemo and RT 15-20 mn from hubby's place of work #lcsm |
| @jmeberth @findlungcancer @JFreemanDaily @BrendonStilesMD I was just there the past 3 days too! | |
| Brendon Stiles @BrendonStilesMD @lgreco_ny Wow! Out of choice or absence? #lcsm |
| Brendon Stiles @BrendonStilesMD T2. Is there data supporting the concept that surgery/oncology/radiation oncology results are better at high volume, specialty centers? #lcsm |
| Laura Greco @lgreco_ny @BrendonStilesMD @plh4lisa @CUCancerCenter T1: I don't consider that far. I drove that much daily for my commute. #lcsm |
| @jmeberth @lgreco_ny Good question! #LCSM I would love to hear more about your experiences. | |
| #LCSM Chat @lcsmchat @BrendonStilesMD Jack @JackWestMD is supposed to be here. He may be on later. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. Is there data supporting the concept that surgery/oncology/radiation oncology results are better at high volume, s… |
| Brendon Stiles @BrendonStilesMD T2. This is what got me thinking about the question from #STS2019. @STS_CTsurgery https://t.co/l7l0TN26dj #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: t1: I live in a rural area. I travel 3.5- hours each way for care. I don't even have a local oncologist. #lcsm |
| Danielle Pardue @Actorielle RT @BrendonStilesMD: T2. Is there data supporting the concept that surgery/oncology/radiation oncology results are better at high volume, s… |
| #LCSM Chat @lcsmchat RT @LungCancerSux: T1: chemo and RT 15-20 mn from hubby's place of work #lcsm |
 | Sean @Sean16810056 RT @jbbigbear: Children deserve more than 4 #morethan4 #pediatriccancer #mycleatsmycause https://t.co/Al2uFOClQ8 |
| Brendon Stiles @BrendonStilesMD T1. Already amazing to me what some consider far and some don't! #lcsm |
| Andrea Borondy Kitts @findlungcancer T1 it also depends on the type of care -- radiation is hard bc often can be every day for many weeks, with some new modalities it is easier with higher localized doses and fewer visits - surgery is special - need to go to the best wherever theyt are #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. Is there data supporting the concept that surgery/oncology/radiation oncology results are better at high volume, s… |
| Aparna Hegde, MD @notahedge T1: i have worked in both community and academic setting. From a med onc standpoint, large academic centers should partner with the community to make cancer care more accessible #lcsm |
| Brendon Stiles @BrendonStilesMD T2. In @STS_CTsurgery study, regionalization of lung cancer surgery led to: -more minimally invasive surgery -shorter hospital stays -less complications #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. Already amazing to me what some consider far and some don't! #lcsm |
| Brendon Stiles @BrendonStilesMD T2. I commented on it here: https://t.co/xPLA8iRvTR #lcsm Tough topic! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @notahedge: T1: i have worked in both community and academic setting. From a med onc standpoint, large academic centers should partner w… |
| Janet Freeman-Daily @JFreemanDaily @BrendonStilesMD I was able to see my #radonc, have #chemo, and get scans at a local clinic (12 mi and 4 mi, respectively), but my oncologist doesn't come to my local clinic, so I drive to him (30 miles). #LCSM |
| Brendon Stiles @BrendonStilesMD T2. Regionalization of lung cancer surgery is also already a “thing” in Canada. [REDACTED USER] [REDACTED USER] #lcsm https://t.co/YYlE3pKkzv |
| Andrea Borondy Kitts @findlungcancer yes - surgery I think is unique and patients should travel if required to get to an experienced thoracic surgeon with good outcomes #lcsm |
| Danielle Pardue @Actorielle @BrendonStilesMD Largely a matter of conditioning. Growing up in a small town, it was completely expected to go 1, 2, 3 hours to a city for an appointment. So, nobody thinks anything of it. Regional care has dramatically improved in the course of my lifetime, though. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @BrendonStilesMD I was able to see my #radonc, have #chemo, and get scans at a local clinic (12 mi and 4 mi, respectivel… |
| Brendon Stiles @BrendonStilesMD @notahedge Totally, totally agree. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. I commented on it here: https://t.co/xPLA8iRvTR #lcsm Tough topic! |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @BrendonStilesMD I was able to see my #radonc, have #chemo, and get scans at a local clinic (12 mi and 4 mi, respectivel… |
| Don Stranathan @don450sl @lcsmchat T1 I travel for advocacy which gives me access to the top professionals in lung cancer research #LCSM |
| Janet Freeman-Daily @JFreemanDaily @BrendonStilesMD @plh4lisa @CUCancerCenter "One Hour" can be 15 miles on a bad traffic day! #LCSM |
| Brendon Stiles @BrendonStilesMD T2. Here is one of the seminal papers on surgical volume outcome effects (Birkmeyer 2002, @NEJM) #lcsm https://t.co/E5ssMbTlo6 |
 | KC Dill @kasedill Hello from Tx #lcsm |
| #LCSM Chat @lcsmchat RT @don450sl: @lcsmchat T1 I travel for advocacy which gives me access to the top professionals in lung cancer research #LCSM |
| Brendon Stiles @BrendonStilesMD T2. Embarrassed to show this mortality rate from 2002 (@DrewMoghanaki will probably use against me), but here was “volume outcome” effect for lung resection. #lcsm https://t.co/rphBe2UpUK |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @BrendonStilesMD @plh4lisa @CUCancerCenter "One Hour" can be 15 miles on a bad traffic day! #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. Here is one of the seminal papers on surgical volume outcome effects (Birkmeyer 2002, @NEJM) #lcsm https://t.co/E… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. Here is one of the seminal papers on surgical volume outcome effects (Birkmeyer 2002, @NEJM) #lcsm https://t.co/E… |
| Laura Greco @lgreco_ny @jmeberth I consider myself having a rare disease. Local oncologists might have seen one or two of me during their career. Not good enough. I wanted to go to someone who specialized in lung cancer and specifically my kind of LC. #lcsm |
| Brendon Stiles @BrendonStilesMD @findlungcancer Well...I think so. #lcsm |
 | Vamsi Velcheti, MD MBA FASCO @VamsiVelcheti Joining from NYC #lcsm |
| #LCSM Chat @lcsmchat @kasedill Welcome! Thanks for joining us. #lcsm |
| Brendon Stiles @BrendonStilesMD @findlungcancer But it may not be totally unique! #lcsm |
| Aparna Hegde, MD @notahedge For most patients in eastern NC, enrolling in a clinical trial is unthinkable. Distance, finances, lack of social support, lack of insurance. Now at MDACC, it's still the same issue. Although such a huge institution, it can't reach the most needy #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. Embarrassed to show this mortality rate from 2002 (@DrewMoghanaki will probably use against me), but here was “vo… |
 | Anita Figueras @scifiknitter T1 Anita from rural northern NY: I travel 45 minutes to my local community cancer center, and all day (350+ miles) for periodic consults/scans in NYC. #lcsm |
| Brendon Stiles @BrendonStilesMD T2. Fortunately, current surgical mortality is much lower even at low volume centers. Notably, this makes it a tough endpoint to use. #lcsm |
| #LCSM Chat @lcsmchat @VamsiVelcheti Welcome Doctor! #lcsm |
| #LCSM Chat @lcsmchat RT @notahedge: For most patients in eastern NC, enrolling in a clinical trial is unthinkable. Distance, finances, lack of social support, l… |
 | Matthew Steliga MD FACS @SteligaMD Joining in. A great topic to discuss. #lcsm |
| Andrea Borondy Kitts @findlungcancer this is not unusual for any type of surgery - there is a learning curve and recency of experience effect - it probably washes out after about 100-200 cases #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. Fortunately, current surgical mortality is much lower even at low volume centers. Notably, this makes it a tough… |
| Brendon Stiles @BrendonStilesMD T2. This is important. Some have reasonably argued that most volume effect studies are flawed and not well controlled for types of patients that can travel. Biased data. #lcsm |
| Laura Greco @lgreco_ny @BrendonStilesMD Out of choice. The survival stats are so dire for LC, that I pledged doing whatever it takes to improve my odds. That included moving to Boston for six plus weeks. #lcsm |
| #LCSM Chat @lcsmchat @SteligaMD Thanks for joining us! #lcsm |
| Brendon Stiles @BrendonStilesMD @VamsiVelcheti Finally an oncologist! Tell them it is important WHO gives the drugs! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @findlungcancer: this is not unusual for any type of surgery - there is a learning curve and recency of experience effect - it probably… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lgreco_ny: @BrendonStilesMD Out of choice. The survival stats are so dire for LC, that I pledged doing whatever it takes to improve my… |
| #LCSM Chat @lcsmchat RT @findlungcancer: this is not unusual for any type of surgery - there is a learning curve and recency of experience effect - it probably… |
| Lisa Moran @plh4lisa @findlungcancer T2: I traveled to a different state for a brain surgery unrelated to #LungCancer would do the same for LC if necessary. #lcsm |
| Laura Greco @lgreco_ny @RedGia I can do it in one day if everything aligns. It's worth it to me. #lcsm. |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. This is important. Some have reasonably argued that most volume effect studies are flawed and not well controlle… |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @BrendonStilesMD Out of choice. The survival stats are so dire for LC, that I pledged doing whatever it takes to improve my… |
| Vamsi Velcheti, MD MBA FASCO @VamsiVelcheti @BrendonStilesMD Are hospital/surgeon specific data available for patients to review? #LCSM |
| Brendon Stiles @BrendonStilesMD T2. Good review on the subject in thoracic surgery: #lcsm https://t.co/tPDuH0QtSr |
| #LCSM Chat @lcsmchat RT @plh4lisa: @findlungcancer T2: I traveled to a different state for a brain surgery unrelated to #LungCancer would do the same for LC if… |
| @jmeberth @findlungcancer #LCSM One critique I hear from rural physicians though is not that they don’t want to use telehealth or even have the right equipment... rather they complain that there are not available specialists to take their calls (too busy with their own patients back at the cancer center). | |
| Andrea Borondy Kitts @findlungcancer this needs to change for 2 reasons 1) provide access to all in need and 2) get more generalizable results if enroll diverse populations #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. Good review on the subject in thoracic surgery: #lcsm https://t.co/tPDuH0QtSr |
| #LCSM Chat @lcsmchat RT @VamsiVelcheti: @BrendonStilesMD Are hospital/surgeon specific data available for patients to review? #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. Good review on the subject in thoracic surgery: #lcsm https://t.co/tPDuH0QtSr |
| #LCSM Chat @lcsmchat RT @jmeberth: @findlungcancer #LCSM One critique I hear from rural physicians though is not that they don’t want to use telehealth or even… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jmeberth: @findlungcancer #LCSM One critique I hear from rural physicians though is not that they don’t want to use telehealth or even… |
| Aparna Hegde, MD @notahedge RT @BrendonStilesMD: T2. Good review on the subject in thoracic surgery: #lcsm https://t.co/tPDuH0QtSr |
| #LCSM Chat @lcsmchat RT @findlungcancer: this needs to change for 2 reasons 1) provide access to all in need and 2) get more generalizable results if enroll div… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @findlungcancer: this needs to change for 2 reasons 1) provide access to all in need and 2) get more generalizable results if enroll div… |
| Brendon Stiles @BrendonStilesMD T2. Our group has also written that patient factors, rather than volume, have more of an effect on short term outcomes. #lcsm https://t.co/jjciIXNbT2 |
| Danielle Pardue @Actorielle RT @notahedge: For most patients in eastern NC, enrolling in a clinical trial is unthinkable. Distance, finances, lack of social support, l… |
| Anita Figueras @scifiknitter @findlungcancer This is pretty much my model, although a couple of clinical trials have demanded more trips to the academic center. It has worked well. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. Our group has also written that patient factors, rather than volume, have more of an effect on short term outcome… |
| Lisa Moran @plh4lisa @BrendonStilesMD I would think an educated patient would increase survival chances with travel or not #lcsm |
| Brendon Stiles @BrendonStilesMD @jmeberth @findlungcancer Good point. We need to be sensitive to their time too and to communicate better. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. Our group has also written that patient factors, rather than volume, have more of an effect on short term outcome… |
| Lung Cancer Sux @LungCancerSux T2: traveled for surgery because local surgeons chose not to operate. Happy with their decisions #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: @findlungcancer This is pretty much my model, although a couple of clinical trials have demanded more trips to the academ… |
| KC Dill @kasedill T1 Diagnosed at a regional cancer center. Sold our home to be closer to The Medical Center in Houston. We are now settled outside of Houston. Cancer uprooted our lives and created a new one. Best thing we ever did #lcsm |
| Danielle Pardue @Actorielle RT @lgreco_ny: @BrendonStilesMD Out of choice. The survival stats are so dire for LC, that I pledged doing whatever it takes to improve my… |
| Brendon Stiles @BrendonStilesMD T2. Therefore, we aren’t sure that “minimum volume standards” make sense (or at least for some of the cutoffs that have been proposed). #lcsm https://t.co/cpVhygodXJ |
| #LCSM Chat @lcsmchat RT @LungCancerSux: T2: traveled for surgery because local surgeons chose not to operate. Happy with their decisions #lcsm |
| Aparna Hegde, MD @notahedge RT @findlungcancer: this needs to change for 2 reasons 1) provide access to all in need and 2) get more generalizable results if enroll div… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @kasedill: T1 Diagnosed at a regional cancer center. Sold our home to be closer to The Medical Center in Houston. We are now settled out… |
| #LCSM Chat @lcsmchat RT @kasedill: T1 Diagnosed at a regional cancer center. Sold our home to be closer to The Medical Center in Houston. We are now settled out… |
| @jmeberth @VamsiVelcheti @BrendonStilesMD Hospital and Physician Compare databases from CMS are good, but don’t always have information on disease specific outcomes. #LCSM | |
| Danielle Pardue @Actorielle RT @plh4lisa: @findlungcancer T2: I traveled to a different state for a brain surgery unrelated to #LungCancer would do the same for LC if… |
| Brendon Stiles @BrendonStilesMD T2. And another seminal paper from @peterbachmd on what I consider the most important outcome – survival. #lcsm https://t.co/Y69qKtdiUs |
| Andrea Borondy Kitts @findlungcancer yes & experienced surgeons may be better at selecting the appropriate patients who will benefit from surgery #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. And another seminal paper from @peterbachmd on what I consider the most important outcome – survival. #lcsm https… |
 | Kristen Digwood @DigwoodKristen Mailing out our latest newsletters to physicians 😊👏🏻 #incontinence #elitepelvicrehab #pelvicfloordysfunction #pelvicpain #ic #interstitialcystitis #pelvichealth #pelvicphysicaltherapy @… https://t.co/1D3QhMYFnD |
| Lung Cancer Sux @LungCancerSux RT @findlungcancer: yes & experienced surgeons may be better at selecting the appropriate patients who will benefit from surgery #lcsm http… |
| @jmeberth @lgreco_ny @BrendonStilesMD That’s amazing. I wonder how many patients could do this though - how would it work financially? Childcare, etc? #LCSM | |
| Andrea Borondy Kitts @findlungcancer @kasedill why -- because you got better care? #lcsm |
| Matthew Steliga MD FACS @SteligaMD @findlungcancer Absolutely agree. #lcsm |
 | gilberto lopes @GlopesMd RT @BrendonStilesMD: T1. Do you travel far for cancer care? If so, why? #lcsm |
| Brendon Stiles @BrendonStilesMD T2. Here is a provocative paper just published from @JTOonline @RamalingamMD suggesting that metastatic lung cancer patients have better survival when treated at academic centers #lcsm https://t.co/GLzxIOatp7 |
| Vamsi Velcheti, MD MBA FASCO @VamsiVelcheti T2: patient specific factors are important to consider- outcomes could be better at major centers of excellence — at least partly because they are more healthy & savvy patients who travel distances to larger cancer centers #LCSM |
| @jmeberth @BrendonStilesMD Although there have been good attempts to deal with this statistically (propensity analysis for example)... to make the data less biased. #LCSM | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. Here is a provocative paper just published from @JTOonline @RamalingamMD suggesting that metastatic lung cancer p… |
| #LCSM Chat @lcsmchat RT @jmeberth: @VamsiVelcheti @BrendonStilesMD Hospital and Physician Compare databases from CMS are good, but don’t always have information… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. And another seminal paper from @peterbachmd on what I consider the most important outcome – survival. #lcsm https… |
| Aparna Hegde, MD @notahedge It's great that @kasedill was able to do this. But many cannot. Cannot speak for surgery and radiation oncology. But med onc can and should be a community - academia partnership #lcsm |
| Brendon Stiles @BrendonStilesMD T2. Small but meaningful differences. Seem to be widening with time. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. Here is a provocative paper just published from @JTOonline @RamalingamMD suggesting that metastatic lung cancer p… |
| #LCSM Chat @lcsmchat RT @notahedge: It's great that @kasedill was able to do this. But many cannot. Cannot speak for surgery and radiation oncology. But med onc… |
| KC Dill @kasedill @findlungcancer Absolutely! The care I receive is unparalleled in my region. #lcsm |
| Brendon Stiles @BrendonStilesMD T2. The wrap up. #lcsm https://t.co/FK554NAdMQ |
| Anita Figueras @scifiknitter T2 I don't know if there is data supporting travel. I do know that the treatment that is best for you may only be available at a large center. My husband had to travel to get low-dose brachytherapy for prostate cancer, simply not available at the local center. #lcsm |
| Brendon Stiles @BrendonStilesMD T3. Let's here about the bad stuff. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. The wrap up. #lcsm https://t.co/FK554NAdMQ |
| #LCSM Chat @lcsmchat @VirginiaMByrne Welcome, Ginny! Be sure to add #LCSM to your tweets so all can see. |
| Brendon Stiles @BrendonStilesMD T3. What are the downsides of and obstacles to traveling for your cancer care? #lcsm |
| Andrea Borondy Kitts @findlungcancer T2 good point frail patients with poor prognosis may elect or may not be able to travel #lcsm |
| Laura Greco @lgreco_ny @jmeberth @BrendonStilesMD I had a 2 and 6 year old at time, and we had to have parents fly in to take care of either them or me. Plus, enormously expensive to stay in Boston. This proposal to regionalize care will go nowhere. Almost no one near me can or will make tremendous time commitment. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. Small but meaningful differences. Seem to be widening with time. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T3. Let's here about the bad stuff. #lcsm |
| KC Dill @kasedill @notahedge Absolutely, I realize I am very very fortunate.. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. The wrap up. #lcsm https://t.co/FK554NAdMQ |
| #LCSM Chat @lcsmchat RT @scifiknitter: T2 I don't know if there is data supporting travel. I do know that the treatment that is best for you may only be availab… |
| @jmeberth @findlungcancer I wonder if we should put more thoracic surgery residency programs in less metropolitan areas though. Physicians are more likely to practice where they were trained. #LCSM | |
| Brendon Stiles @BrendonStilesMD T3. It turns out that it can be pretty painful getting in to #NewYorkCity (and other big cities too)! #lcsm https://t.co/3m2nVzOt2K |
| #LCSM Chat @lcsmchat RT @findlungcancer: T2 good point frail patients with poor prognosis may elect or may not be able to travel #lcsm https://t.co/czUGAw17P7 |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @jmeberth @BrendonStilesMD I had a 2 and 6 year old at time, and we had to have parents fly in to take care of either them o… |
| #LCSM Chat @lcsmchat RT @jmeberth: @findlungcancer I wonder if we should put more thoracic surgery residency programs in less metropolitan areas though. Physici… |
| Anita Figueras @scifiknitter RT @findlungcancer: this needs to change for 2 reasons 1) provide access to all in need and 2) get more generalizable results if enroll div… |
| Andrea Borondy Kitts @findlungcancer #LCSM @CrisAlvaradoMD |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. It turns out that it can be pretty painful getting in to #NewYorkCity (and other big cities too)! #lcsm https://t… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T3. It turns out that it can be pretty painful getting in to #NewYorkCity (and other big cities too)! #lcsm https://t… |
| Janet Freeman-Daily @JFreemanDaily Downsides of traveling with cancer: scheduling flights, weather problems, feeling crappy away from home, unsure what to do when you have problems at home & onc is far away, cost of travel & hotel, time away from family. #LCSM |
| Brendon Stiles @BrendonStilesMD T3. And the Parking! #lcsm https://t.co/VXW8Bv6NUG |
 | Enlightening Results 💡 @GraceCordovano @BrendonStilesMD Catching up here on a juicy discussion while troops painfully delay bedtime. #lcsm https://t.co/z2Hrn7ay5i |
| Laura Greco @lgreco_ny T3: It is so incredibly expensive and disruptive to travel for this. However, field is changing so fast that it isn't realistic to expect a local oncologist to keep abreast of lung cancer, much less my type of LC. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. And the Parking! #lcsm https://t.co/VXW8Bv6NUG |
| Brendon Stiles @BrendonStilesMD T3. Without a doubt, bigger far away hospitals can feel impersonal and a bit like a factory. How do people feel about this aspect? #lcsm https://t.co/mSeGwN58hk |
| Lisa Moran @plh4lisa @BrendonStilesMD T3: the #1 downside for me would be finances. The costs of travel and lodging would be a major factor in my decision to travel for care or not. #lcsm |
| Brendon Stiles @BrendonStilesMD @kasedill Wow! #lcsm |
 | Lung Cancer #1 cancer killer of women @VirginiaMByrne #LCSM Even from New Jersey! |
| Brendon Stiles @BrendonStilesMD T3. When my dad had lung cancer, although we got opinions from big centers, we elected for him to get treatment locally. He just didn't want to be away from home. #lcsm |
| Vamsi Velcheti, MD MBA FASCO @VamsiVelcheti @BrendonStilesMD @JTOonline @RamalingamMD Not surprised- several factors to consider here-1) possibly better /quicker access to care in academic settings (time to treat) 2) Access to subspecialists 3) access to clinical trials 4) patient factors for example healthier and savvy patients travel for care |
| Janet Freeman-Daily @JFreemanDaily T3: Another downside of traveling w/cancer: sometimes side effects of treatment, symptoms, or cancer progression prevent you from going home after remote visit to specialist. #lcsm |
| Andrea Borondy Kitts @findlungcancer T3 cost, loss of social system, harder to get food and other needs met, tiring, complicated logistics, difficult traveling when not feeling well, finding support to take care of people/things back home #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T3. When my dad had lung cancer, although we got opinions from big centers, we elected for him to get treatment local… |
| Brendon Stiles @BrendonStilesMD T3. We felt like the upsides of traveling for any marginal improvement weren’t worth it and he had a great local oncologist who he trusted and was comfortable with. #lcsm |
| Brendon Stiles @BrendonStilesMD @JFreemanDaily Great and probably underappreciated point! #lcsm |
| @jmeberth @lgreco_ny @BrendonStilesMD Must have been tough to be away from the kids. Mad respect for you! | |
| Danielle Pardue @Actorielle (Thread) #lcsm I don't know the academic words for this, but here's my anecdotal take, having grown up rural and having had this conversation hundreds of times: folks go to the hospital they've always gone to, for any reason from a broken finger to LC, and |
| Danielle Pardue @Actorielle them they just do whatever can be done at that hospital, and that's the end of the story. There is rarely any thought given to the strengths of the hospital or a questioning of the tx plan. #lcsm |
| Don Stranathan @don450sl @lcsmchat When In NY taking Penny to MSK in the city was a nightmare. Always a 12 hour day #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3: When I was first flying to Denver and still dealing with aftermath of pneumonitis, my O2 levels were in the 80s (Denver is a mile high). #lcsm |
| Aparna Hegde, MD @notahedge @BrendonStilesMD Perhaps this has to do with patient factors. Patients who can travel to academic centers may have lower symptom burden, less comorbidities, better organ function, more social and financial support, etc..Wonder if there is any insight into possible reasons for the findings #lcsm |
| Brendon Stiles @BrendonStilesMD @lgreco_ny This is true. No one's fault. Field is just moving fast. Probably too fast for non-specialists! #lcsm |
| Laura Greco @lgreco_ny @JFreemanDaily You definitely have to be flexible! I learned early to bring extra clothes even for "day" trips. #lcsm |
| Anita Figueras @scifiknitter T3 A big issue is the financial cost of traveling for care. I'm VERY fortunate, my insurance reimburses for travel costs when I travel to a NCI designated comprehensive center. I'm VERY aware of how privileged I am. #lcsm |
| Brendon Stiles @BrendonStilesMD @JFreemanDaily Wait a minute! Denver is mile high?!?! Yikes. #lcsm |
| Vamsi Velcheti, MD MBA FASCO @VamsiVelcheti @BrendonStilesMD especially for surgery- isn’t there data on outcomes for lobectomy done by CTS v.s. thoracic surgeons?? Most community practices don’t have thoracic surgeons operating— correct? @BrendonStilesMD |
| Andrea Borondy Kitts @findlungcancer T3 I was fortunate - our oncologist relied on me to do research on different options, then he checked them out and facilitated getting the treatment - win-win - he didn't have time #lcsm |
| Brendon Stiles @BrendonStilesMD T3. Of course, much has happened in lung cancer since my dad passed away and there are many more treatment options to be considered. #lcsm |
| #LCSM Chat @lcsmchat "I travel three hours each way to see my oncologist at wvu cancer center. Well worth the drive." #lcsm |
| Brendon Stiles @BrendonStilesMD @lgreco_ny @JFreemanDaily It is humbling what patients go through. Good for doctors to remember as they work through their busy days! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @findlungcancer: T3 I was fortunate - our oncologist relied on me to do research on different options, then he checked them out and faci… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: Another downside of traveling w/cancer: sometimes side effects of treatment, symptoms, or cancer progression prevent… |
| #LCSM Chat @lcsmchat RT @findlungcancer: T3 cost, loss of social system, harder to get food and other needs met, tiring, complicated logistics, difficult travel… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. We felt like the upsides of traveling for any marginal improvement weren’t worth it and he had a great local onco… |
| Janet Freeman-Daily @JFreemanDaily T3: One time I was traveling to Denver for clinical trial visit, they were having a blizzard! Thank goodness @AlaskaAir know hows to fly in winter weather--all other airlines cancelled their flights, but I got there just a few hours late. #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: (Thread) #lcsm I don't know the academic words for this, but here's my anecdotal take, having grown up rural and having had… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: @lgreco_ny @JFreemanDaily It is humbling what patients go through. Good for doctors to remember as they work through… |
| #LCSM Chat @lcsmchat RT @Actorielle: them they just do whatever can be done at that hospital, and that's the end of the story. There is rarely any thought given… |
| Anita Figueras @scifiknitter RT @JFreemanDaily: Downsides of traveling with cancer: scheduling flights, weather problems, feeling crappy away from home, unsure what to… |
| #LCSM Chat @lcsmchat RT @don450sl: @lcsmchat When In NY taking Penny to MSK in the city was a nightmare. Always a 12 hour day #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: When I was first flying to Denver and still dealing with aftermath of pneumonitis, my O2 levels were in the 80s (Den… |
 | Joe Boyle🇺🇸🇮🇪 @HistoryBoyle @BrendonStilesMD I wish I could fully explain @ClevelandClinic ‘s magic, but even though it’s orders of magnitude larger than my local cancer centers, it feels more intimate. The 1st visit was scary (probably because I was a new cancer pt & EVERYTHING was scary), 1/ |
| #LCSM Chat @lcsmchat RT @notahedge: @BrendonStilesMD Perhaps this has to do with patient factors. Patients who can travel to academic centers may have lower sym… |
| Laura Greco @lgreco_ny Here's one downside. Because I don't get any local treatment, I am completely disconnected from local social support services. It's hard to find out about them unless hooked into local practice. #lcsm |
| KC Dill @kasedill @Actorielle This was the path my mother took, I witnessed her treatment and the effects. I ran to the city. It was fight and flight for me #lcsm. |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @JFreemanDaily You definitely have to be flexible! I learned early to bring extra clothes even for "day" trips. #lcsm |
| Brendon Stiles @BrendonStilesMD @VamsiVelcheti Lots in some of the earlier thread. But complicated by patient factors too. #lcsm |
| #LCSM Chat @lcsmchat RT @findlungcancer: T3 I was fortunate - our oncologist relied on me to do research on different options, then he checked them out and faci… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. Of course, much has happened in lung cancer since my dad passed away and there are many more treatment options to… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: @lgreco_ny @JFreemanDaily It is humbling what patients go through. Good for doctors to remember as they work through… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @kasedill: @Actorielle This was the path my mother took, I witnessed her treatment and the effects. I ran to the city. It was fight and… |
| Brendon Stiles @BrendonStilesMD T4. How can we best coordinate care between community and high volume regional centers? #lcsm |
| Danielle Pardue @Actorielle RT @BrendonStilesMD: T4. How can we best coordinate care between community and high volume regional centers? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T4. How can we best coordinate care between community and high volume regional centers? #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: Here's one downside. Because I don't get any local treatment, I am completely disconnected from local social support service… |
| Brendon Stiles @BrendonStilesMD T4. True coordination of care would seem to be the key. #lcsm https://t.co/K6QrYHckog |
| Danielle Pardue @Actorielle @BrendonStilesMD Honest but perhaps unhelpful answer: personal relationships between the providers at each location. Talk about expediting care! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. How can we best coordinate care between community and high volume regional centers? #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. True coordination of care would seem to be the key. #lcsm https://t.co/K6QrYHckog |
| Laura Greco @lgreco_ny @BrendonStilesMD As an attorney specializing in consumer finance law, particularly mortgage servicing, I know how hard it was to keep up that tiny slice of legal heaven. We are asking oncs to be generalists when cancer care is getting increasingly specialized. #lcsm |
| Brendon Stiles @BrendonStilesMD @lgreco_ny Great point. #lcsm |
| Andrea Borondy Kitts @findlungcancer Travel is hard even if feeling well; if in pain or limited mobility it can be worse than an obstacle course - not for the faint of heart, always risk of being hospitalized far from home and loved ones #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: @BrendonStilesMD Honest but perhaps unhelpful answer: personal relationships between the providers at each location. Talk a… |
| Lisa Moran @plh4lisa @BrendonStilesMD @JFreemanDaily I live at 6035 ft. Over a mile high. #lcsm |
| Vamsi Velcheti, MD MBA FASCO @VamsiVelcheti @findlungcancer There are circumstances where it doesn’t make sense for patients to drive hours for treatment- sometimes it is just OK to have a academic oncologist coordinate care with community oncologists #LCSM The key is to have the right recommendations/plan of care |
| Brendon Stiles @BrendonStilesMD T4. And have to make sure we don’t limit access for patients who can’t travel. #lcsm |
| Aparna Hegde, MD @notahedge T3: I've experienced this first hand. I traveled 10 hours every 2 weeks for my ABVD. I was young, had a very supportive family and knew treatment was finite. I cannot imagine doing this indefinitely. #lcsm |
| Brendon Stiles @BrendonStilesMD T4. Have to do better at shared EMR data and basic communication between doctors. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @BrendonStilesMD T4 Coordinating care between centers was a challenge at first--still had to carry my scan CDs and lab reports between local and remote oncs. After 6 years, they just call each other. #LCSM |
| Brendon Stiles @BrendonStilesMD T4. We particularly have to communicate potential side effects of targeted therapies and immunotherapy so that local doctors can recognize early. #lcsm |
 | Hank Mardukas @DukeMardukas @BrendonStilesMD Not being able to rest and recover in the comfort and familiarity of your home. The possibility of not having the support of close family and friends nearby. |
| Laura Greco @lgreco_ny @JFreemanDaily @AlaskaAir This time last year we attempted to drive home in a blizzard (that snow bomb event.) We didn't get far before we had to find a hotel. #lcsm Good times! |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @BrendonStilesMD As an attorney specializing in consumer finance law, particularly mortgage servicing, I know how hard it wa… |
| Brendon Stiles @BrendonStilesMD RT @plh4lisa: @BrendonStilesMD @JFreemanDaily I live at 6035 ft. Over a mile high. #lcsm |
| #LCSM Chat @lcsmchat RT @findlungcancer: Travel is hard even if feeling well; if in pain or limited mobility it can be worse than an obstacle course - not for t… |
| #LCSM Chat @lcsmchat RT @VamsiVelcheti: @findlungcancer There are circumstances where it doesn’t make sense for patients to drive hours for treatment- sometimes… |
| Matthew Steliga MD FACS @SteligaMD T3: One thing we do at @uamscancer is have a nurse navigator who contacts the patient and family before visit. She is a point of contact for them; they have her contact and she guided them each step. Our RN navigator is a star! #lcsm |
| Andrea Borondy Kitts @findlungcancer T4 collaborations and affiliations between community & high volume with rotations of key clinicians - identifying centers of excellence for imaging & labs & biopsies at community locations with over read by high volume centers #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T4. Have to do better at shared EMR data and basic communication between doctors. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. And have to make sure we don’t limit access for patients who can’t travel. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T4. We particularly have to communicate potential side effects of targeted therapies and immunotherapy so that local… |
| #LCSM Chat @lcsmchat RT @notahedge: T3: I've experienced this first hand. I traveled 10 hours every 2 weeks for my ABVD. I was young, had a very supportive fami… |
| Janet Freeman-Daily @JFreemanDaily RT @VamsiVelcheti: @findlungcancer There are circumstances where it doesn’t make sense for patients to drive hours for treatment- sometimes… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. Have to do better at shared EMR data and basic communication between doctors. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. We particularly have to communicate potential side effects of targeted therapies and immunotherapy so that local… |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @JFreemanDaily @AlaskaAir This time last year we attempted to drive home in a blizzard (that snow bomb event.) We didn't ge… |
| #LCSM Chat @lcsmchat RT @SteligaMD: T3: One thing we do at @uamscancer is have a nurse navigator who contacts the patient and family before visit. She is a poin… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @SteligaMD: T3: One thing we do at @uamscancer is have a nurse navigator who contacts the patient and family before visit. She is a poin… |
| #LCSM Chat @lcsmchat RT @findlungcancer: T4 collaborations and affiliations between community & high volume with rotations of key clinicians - identifying cente… |
| Brendon Stiles @BrendonStilesMD T4. Cancer centers shouldn’t be black holes, sucking everything in and not letting anything (or information) back out. #lcsm https://t.co/jLUlFIRojC |
| Aparna Hegde, MD @notahedge Just what we need. Be creative #lcsm |
| Laura Greco @lgreco_ny Yes! Some doctors are better than other in coordinating with each other. #lcsm |
| Don Stranathan @don450sl @BrendonStilesMD @lcsmchat T4 I feel ALCF is making progress with their Centers of Excellence #LCSM |
| Brendon Stiles @BrendonStilesMD T4. Appropriate and nuanced cancer care can be given in communities, particularly when in communication with centers of excellence. #lcsm |
| Vamsi Velcheti, MD MBA FASCO @VamsiVelcheti @findlungcancer They key is to have good and timely communication between oncologists to help guide care #LCSM |
| Brendon Stiles @BrendonStilesMD @lgreco_ny If it makes you feel any better, I too get pissed when doctors don't call me about my patients. #lcsm |
| Andrea Borondy Kitts @findlungcancer T4 good point - and also share available treatments & clinical trials across centers and find way to provide access at community site for people who cant travel #lcsm |
| #LCSM Chat @lcsmchat RT @don450sl: @BrendonStilesMD @lcsmchat T4 I feel ALCF is making progress with their Centers of Excellence #LCSM |
| Brendon Stiles @BrendonStilesMD T4. Many hospitals are joining networks anchored by large academic centers. Provides great opportunity for continued education, virtual tumor boards, pathology reviews, etc. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. Appropriate and nuanced cancer care can be given in communities, particularly when in communication with centers… |
| #LCSM Chat @lcsmchat RT @VamsiVelcheti: @findlungcancer They key is to have good and timely communication between oncologists to help guide care #LCSM |
| Janet Freeman-Daily @JFreemanDaily @plh4lisa @BrendonStilesMD Flying from sea level to a mile high takes a few days of adjustment! #lcsm |
| #LCSM Chat @lcsmchat RT @findlungcancer: T4 good point - and also share available treatments & clinical trials across centers and find way to provide access at… |
| Lung Cancer Sux @LungCancerSux RT @BrendonStilesMD: T2. The wrap up. #lcsm https://t.co/FK554NAdMQ |
| Lisa Moran @plh4lisa T4: it would be better to have each facility on the same data sharing system to be able to view all scans and tests. #lcsm |
| Andrea Borondy Kitts @findlungcancer T4 it would help if we had better interoperability with our medical record systems #lcsm |
| Brendon Stiles @BrendonStilesMD T5. Are there resources that exist to help patients educate themselves, get second opinions, or even facilitate travel for cancer care? #lcsm |
| @DavidCookeMD A4 @UCDavisHealth and one of our community partners @MarshallMedical is connected via EHR. Makes communication and imaging review very simple. Especially for complex #LungCancer care. #LCSM | |
| Danielle Pardue @Actorielle T3: I hate to say this because it sounds awful, but there's a bit of useful gamesmanship in purposefully becoming friends with every person you meet when coming to a new hospital for treatment. #lcsm |
| Brendon Stiles @BrendonStilesMD T5. Certainly lots of great websites for patients. Which are your favorites? #lcsm |
| Laura Greco @lgreco_ny @BrendonStilesMD I also think if you are going to stay local but consult with another doc that as a patient, you need to be a very active and engaged participant in your care. There is just more potential for errors. #lcsm |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne #lcsm I thought that being at an academic center would lead to better symptom/side effects MGMT., But I haven't found that at MSK. |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. Are there resources that exist to help patients educate themselves, get second opinions, or even facilitate trave… |
| Andrea Borondy Kitts @findlungcancer consider writing up case studies with best practices specifically for #lungcancer care #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A4 @UCDavisHealth and one of our community partners @MarshallMedical is connected via EHR. Makes communication and imagin… |
| Lung Cancer Sux @LungCancerSux Very lucky to have best neuro oncologist and neurosurgeon in my back yard #lcsm |
| Brendon Stiles @BrendonStilesMD T5. I love the proliferation of patient groups like @EGFRResisters @ALKLungCancer @ROS1cancer. The ability of members to share info w/ new patients is critical. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @BrendonStilesMD Some oncologists will do remote second opinions over the phone (not covered by insurance in the US). #LCSM |
| Matthew Steliga MD FACS @SteligaMD T4. Communication. Communication. Both ways- referring community needs to be able to get in touch w regional center MDs easily, & those referral centers need to get records, plans, & results back to referring docs. #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T3: I hate to say this because it sounds awful, but there's a bit of useful gamesmanship in purposefully becoming friends w… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. Certainly lots of great websites for patients. Which are your favorites? #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @BrendonStilesMD I also think if you are going to stay local but consult with another doc that as a patient, you need to be… |
| KC Dill @kasedill RT @Actorielle: T3: I hate to say this because it sounds awful, but there's a bit of useful gamesmanship in purposefully becoming friends w… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T5. Certainly lots of great websites for patients. Which are your favorites? #lcsm |
| Andrea Borondy Kitts @findlungcancer RT @DavidCookeMD: A4 @UCDavisHealth and one of our community partners @MarshallMedical is connected via EHR. Makes communication and imagin… |
| #LCSM Chat @lcsmchat RT @VirginiaMByrne: #lcsm I thought that being at an academic center would lead to better symptom/side effects MGMT., But I haven't found t… |
| #LCSM Chat @lcsmchat RT @findlungcancer: consider writing up case studies with best practices specifically for #lungcancer care #lcsm https://t.co/BVCE2gIVPv |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T5. Are there resources that exist to help patients educate themselves, get second opinions, or even facilitate trave… |
| Danielle Pardue @Actorielle RT @BrendonStilesMD: T5. Are there resources that exist to help patients educate themselves, get second opinions, or even facilitate trave… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. I love the proliferation of patient groups like @EGFRResisters @ALKLungCancer @ROS1cancer. The ability of member… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @BrendonStilesMD Some oncologists will do remote second opinions over the phone (not covered by insurance in the US). #L… |
| #LCSM Chat @lcsmchat RT @SteligaMD: T4. Communication. Communication. Both ways- referring community needs to be able to get in touch w regional center MDs easi… |
| Brendon Stiles @BrendonStilesMD T5. Telemedicine is also ramping up in many places. May provide good avenue for second opinions. #lcsm https://t.co/iDu8Hu4fed |
| Danielle Pardue @Actorielle RT @BrendonStilesMD: T5. I love the proliferation of patient groups like @EGFRResisters @ALKLungCancer @ROS1cancer. The ability of member… |
| @DavidCookeMD A5 https://t.co/fse3ihfj2U of course! #LCSM | |
| Andrea Borondy Kitts @findlungcancer RT @SteligaMD: T4. Communication. Communication. Both ways- referring community needs to be able to get in touch w regional center MDs easi… |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @BrendonStilesMD Some oncologists will do remote second opinions over the phone (not covered by insurance in the US). #L… |
| Aparna Hegde, MD @notahedge These need to be true partnerships. Some are just in name/financial. Very important to check with your physician if this is your expectation #lcsm |
| Danielle Pardue @Actorielle RT @BrendonStilesMD: T5. Telemedicine is also ramping up in many places. May provide good avenue for second opinions. #lcsm https://t.co/… |
 | Stephen V Liu, MD @StephenVLiu @BrendonStilesMD T5: some trials, particularly for rare genomic subsets, will often help arrange or reimburse travel to the nearest clinical site. Contact information for each trial would be on https://t.co/XuAni5RDnV #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. Telemedicine is also ramping up in many places. May provide good avenue for second opinions. #lcsm https://t.co/… |
| @DavidCookeMD RT @findlungcancer: consider writing up case studies with best practices specifically for #lungcancer care #lcsm https://t.co/BVCE2gIVPv | |
| Janet Freeman-Daily @JFreemanDaily T5: National Comprehensive Cancer Network members are good options for second opinions. https://t.co/pcVWZdK1qg #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A5 https://t.co/fse3ihfj2U of course! #LCSM https://t.co/yyRW0ZpsZD |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #Telemedicine #Telehealth #PatientsFirst #lcsm |
| @jmeberth @BrendonStilesMD I think they have something like this already in KY through the Markey Cancer Center (has many affiliates across the state). #LCSM | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #lcsm FTW |
| Andrea Borondy Kitts @findlungcancer RT @BrendonStilesMD: T5. Telemedicine is also ramping up in many places. May provide good avenue for second opinions. #lcsm https://t.co/… |
| Aparna Hegde, MD @notahedge RT @BrendonStilesMD: T4. How can we best coordinate care between community and high volume regional centers? #lcsm |
| Andrea Borondy Kitts @findlungcancer RT @TimAllenMDJD: #Telemedicine #Telehealth #PatientsFirst #lcsm https://t.co/WNEkyeooKz |
| Brendon Stiles @BrendonStilesMD T5. Here is our site from @WeillCornell @nyphospital #lcsm https://t.co/KSVLTw7xFP |
| Janet Freeman-Daily @JFreemanDaily T5: The major #lungcancer advocacy organizations can assist in finding clinical trials--some even have clinical trial finder software on their websites. #LCSM |
| Brendon Stiles @BrendonStilesMD T5. I have also been impressed with this information rich website for cancer patients (w/ disclosure that I have met with team for @lcrf_org): https://t.co/DtDc6oIWLN #lcsm |
| Anita Figueras @scifiknitter T4 As with so many things, it's all relationships. If you are going to have both local and distant doctors, you gotta pick ones who are willing to collaborate. Bonus: doctors willing to talk with each other are more likely to talk with you! #lcsm |
| #LCSM Chat @lcsmchat RT @notahedge: These need to be true partnerships. Some are just in name/financial. Very important to check with your physician if this is… |
| @jmeberth @findlungcancer It always amazes me that all the EHR systems cannot “talk” to one another given the high level of tech that exists in other sectors. #LCSM | |
| Vamsi Velcheti, MD MBA FASCO @VamsiVelcheti @BrendonStilesMD It is sometimes hard though... especially if the community oncologists are not in the same system/EMR #LCSM |
| @DavidCookeMD A5 Epic offers video clinic functionality as part of “MyChart” though often not covered by insurance. #LCSM | |
| Enlightening Results 💡 @GraceCordovano RT @BrendonStilesMD: T1. Curiously, they put “cure” in the supplemental data. Seems important. #lcsm https://t.co/xtMuBYqt6N |
| #LCSM Chat @lcsmchat RT @StephenVLiu: @BrendonStilesMD T5: some trials, particularly for rare genomic subsets, will often help arrange or reimburse travel to th… |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T5: The major #lungcancer advocacy organizations can assist in finding clinical trials--some even have clinical trial fi… |
| Brendon Stiles @BrendonStilesMD @SteligaMD Totally agree. #lcsm |
| #LCSM Chat @lcsmchat RT @jmeberth: @BrendonStilesMD I think they have something like this already in KY through the Markey Cancer Center (has many affiliates ac… |
| KC Dill @kasedill T5 cam is where I truly connect and have my questions answered. The personal and professional collaboration and knowledge is amazing and very appreciated.#lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. Here is our site from @WeillCornell @nyphospital #lcsm https://t.co/KSVLTw7xFP |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: The major #lungcancer advocacy organizations can assist in finding clinical trials--some even have clinical trial fi… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. I have also been impressed with this information rich website for cancer patients (w/ disclosure that I have met… |
| Andrea Borondy Kitts @findlungcancer T5 I find twitter #lcsm to be best site overall for getting latest info, support and questions answered |
| #LCSM Chat @lcsmchat RT @scifiknitter: T4 As with so many things, it's all relationships. If you are going to have both local and distant doctors, you gotta pic… |
| Janet Freeman-Daily @JFreemanDaily T5: The oncogene-focused patient groups and #lungcancer online communities can sometimes help patients identify good clinical trial options. #LCSM |
| #LCSM Chat @lcsmchat RT @jmeberth: @findlungcancer It always amazes me that all the EHR systems cannot “talk” to one another given the high level of tech that e… |
| #LCSM Chat @lcsmchat RT @VamsiVelcheti: @BrendonStilesMD It is sometimes hard though... especially if the community oncologists are not in the same system/EMR #… |
| Laura Greco @lgreco_ny Caring Ambassadors has a great newsletter with developments. #lcsm |
| Lisa Moran @plh4lisa @BrendonStilesMD T5: my best resources are other patients, @EGFRResisters @lcsmchat and @TheALCF Living rooms. I know @AmericanCancer has a travel program. #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A5 Epic offers video clinic functionality as part of “MyChart” though often not covered by insurance. #LCSM https://t.co/… |
| Brendon Stiles @BrendonStilesMD @VamsiVelcheti Super hard. We haven't reached the potential that was expected of EMRs. #lcsm |
| #LCSM Chat @lcsmchat RT @kasedill: T5 cam is where I truly connect and have my questions answered. The personal and professional collaboration and knowledge is… |
| Aparna Hegde, MD @notahedge @BrendonStilesMD We need an EHR that's as user friendly as Twitter or Facebook. Legacy systems need to be phased out. But who's gonna do it? Does anyone know about new developments in this area? #lcsm |
| #LCSM Chat @lcsmchat RT @findlungcancer: T5 I find twitter #lcsm to be best site overall for getting latest info, support and questions answered |
 | Angela Barry @CriswellAngela @findlungcancer In rural KY, lack of reliable transportation is a real barrier. An hour away may as well be 10, when it comes to the difficulty of keeping regular medical appointments. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: The oncogene-focused patient groups and #lungcancer online communities can sometimes help patients identify good cli… |
| #LCSM Chat @lcsmchat RT @lgreco_ny: Caring Ambassadors has a great newsletter with developments. #lcsm |
| Brendon Stiles @BrendonStilesMD @jmeberth @findlungcancer Sometimes I can't even get mine to "talk" to me! #lcsm |
| #LCSM Chat @lcsmchat RT @plh4lisa: @BrendonStilesMD T5: my best resources are other patients, @EGFRResisters @lcsmchat and @TheALCF Living rooms. I know @Ameri… |
| KC Dill @kasedill RT @BrendonStilesMD: T5. I have also been impressed with this information rich website for cancer patients (w/ disclosure that I have met… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: @VamsiVelcheti Super hard. We haven't reached the potential that was expected of EMRs. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T5: The oncogene-focused patient groups and #lungcancer online communities can sometimes help patients identify good cli… |
| KC Dill @kasedill @BrendonStilesMD @lcrf_org Bookmarking #lcsm |
| Brendon Stiles @BrendonStilesMD @findlungcancer You better believe it! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: American Cancer Society offers free housing and transportation to cancers patients. Also, check out Nancy's List online for financial resources to help with travel. #LCSM |
| @jmeberth @BrendonStilesMD I know the @AmericanCancer Society has a great hotline to connect people with local resources including travel assistance. #LCSM | |
| Brendon Stiles @BrendonStilesMD Almost time to wind the chat down. This has been an incredible discussion. #lcsm |
| Anita Figueras @scifiknitter RT @jmeberth: @findlungcancer It always amazes me that all the EHR systems cannot “talk” to one another given the high level of tech that e… |
| Aparna Hegde, MD @notahedge RT @JFreemanDaily: T5: American Cancer Society offers free housing and transportation to cancers patients. Also, check out Nancy's List on… |
| Brendon Stiles @BrendonStilesMD @CriswellAngela @findlungcancer That is painful and a real problem. #lcsm |
| Aparna Hegde, MD @notahedge RT @jmeberth: @BrendonStilesMD I know the @AmericanCancer Society has a great hotline to connect people with local resources including trav… |
| Enlightening Results 💡 @GraceCordovano @findlungcancer Traveling can be challenging, juggling responsibilities of careers, logistics of child care, transportation, arranging elder care of perhaps aging parents. Carepartners may not be able to attend all travel. There’s fatigue & toll on mental health too #lcsm |
| Andrea Borondy Kitts @findlungcancer Healthcare is in the stone ages compared to others - only now are medical societies identifying skills and domains to train physicians on providing digital/virtual care #LCSm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jmeberth: @BrendonStilesMD I know the @AmericanCancer Society has a great hotline to connect people with local resources including trav… |
| Brendon Stiles @BrendonStilesMD [REDACTED USER] [REDACTED USER] Where have you been? We need some Canadian expertise! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @notahedge @BrendonStilesMD I was just at a conference today at the National Institute of Medicine talking about data sharing, EHRs, etc. Have you checked out Open Notes? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @plh4lisa: @BrendonStilesMD T5: my best resources are other patients, @EGFRResisters @lcsmchat and @TheALCF Living rooms. I know @Ameri… |
| Don Stranathan @don450sl @lcsmchat T5 I am hearing good feedback on Massive Bio on free clinical matching and 2nd opinions for a fee. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: American Cancer Society offers free housing and transportation to cancers patients. Also, check out Nancy's List on… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T5: The oncogene-focused patient groups and #lungcancer online communities can sometimes help patients identify good cli… |
| @DavidCookeMD A5 what’s new with @lyft and @Uber with help with clinic visits? #LCSM | |
| #LCSM Chat @lcsmchat RT @jmeberth: @BrendonStilesMD I know the @AmericanCancer Society has a great hotline to connect people with local resources including trav… |
| Danielle Pardue @Actorielle RT @GraceCordovano: @findlungcancer Traveling can be challenging, juggling responsibilities of careers, logistics of child care, transporta… |
| Andrea Borondy Kitts @findlungcancer Time for Ubercare #lcsm |
| Brendon Stiles @BrendonStilesMD Doctors need patients and advocates to constructively share their stories and experiences. That is how we learn from you. So share stories about traveling with your treatment team, good or bad. #lcsm |
| #LCSM Chat @lcsmchat RT @GraceCordovano: @findlungcancer Traveling can be challenging, juggling responsibilities of careers, logistics of child care, transporta… |
| #LCSM Chat @lcsmchat RT @findlungcancer: Healthcare is in the stone ages compared to others - only now are medical societies identifying skills and domains to t… |
| Aparna Hegde, MD @notahedge T5 please ask to meet a social worker. Also ask the study coordinators if the trial reimburses your expenses #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @notahedge @BrendonStilesMD I was just at a conference today at the National Institute of Medicine talking about data sh… |
| #LCSM Chat @lcsmchat RT @don450sl: @lcsmchat T5 I am hearing good feedback on Massive Bio on free clinical matching and 2nd opinions for a fee. #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A5 what’s new with @lyft and @Uber with help with clinic visits? #LCSM https://t.co/tWSXW5gSO9 |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #DigitalPathology #lcsm |
| Brendon Stiles @BrendonStilesMD Please share your closing thoughts! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: Doctors need patients and advocates to constructively share their stories and experiences. That is how we learn from… |
| #LCSM Chat @lcsmchat RT @notahedge: T5 please ask to meet a social worker. Also ask the study coordinators if the trial reimburses your expenses #lcsm |
| Andrea Borondy Kitts @findlungcancer RT @BrendonStilesMD: Doctors need patients and advocates to constructively share their stories and experiences. That is how we learn from… |
| Brendon Stiles @BrendonStilesMD My take away – lung cancer is almost always worth a second opinion. Feel things out, get options, and make an educated decision. Go where you are comfortable and confident. #lcsm |
| Danielle Pardue @Actorielle RT @BrendonStilesMD: My take away – lung cancer is almost always worth a second opinion. Feel things out, get options, and make an educated… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD It has been a privilege to participate. #lcsm |
| Aparna Hegde, MD @notahedge @BrendonStilesMD @JFreemanDaily haven't heard of open notes. But will check it out. |
| @DavidCookeMD Simulation night for our residency program so missed the chat, but I look forward to the transcript! #meded #lcsm | |
| Brendon Stiles @BrendonStilesMD I believe in a “volume-outcome” effect. In surgery, oncology, radiation oncology, pathology. Everything! But I also believe that it shouldn’t come at the expense of personalized care and respect for patients as people. #lcsm |
 | Ten Dugud @TenDugud Open house was a success. Double digit sign up. #pvamu #groovephigroove #Gphi #MIGs @ Prairie View, Texas https://t.co/PqyBw4waN6 |
| @DavidCookeMD RT @BrendonStilesMD: My take away – lung cancer is almost always worth a second opinion. Feel things out, get options, and make an educated… | |
| Enlightening Results 💡 @GraceCordovano @BrendonStilesMD @plh4lisa @CUCancerCenter Many considerations here. Will leaving early & often be frowned upon at work? Make child care unaffordable? Accessibility by public transportation? Physical ability to endure a long round trip after a taxing day at the dr or infusion center? #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: My take away – lung cancer is almost always worth a second opinion. Feel things out, get options, and make an educated… |
| Lisa Moran @plh4lisa @DavidCookeMD @lyft @Uber For last couple montgs and through Feb I get a 30% @Uber discount to approved @uchealth buildings. #LCSM |
| Brendon Stiles @BrendonStilesMD Thanks to all of the #lcsm community who joined. And thanks to all of our guests tonight. Great discussion on an important topic! #lcsm |
| Danielle Pardue @Actorielle Thank you, my friends #lcsm |
| Brendon Stiles @BrendonStilesMD RT @JFreemanDaily: T5: American Cancer Society offers free housing and transportation to cancers patients. Also, check out Nancy's List on… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: I believe in a “volume-outcome” effect. In surgery, oncology, radiation oncology, pathology. Everything! But I also… |
| Vamsi Velcheti, MD MBA FASCO @VamsiVelcheti @StephenVLiu @BrendonStilesMD T5 One of the big challenges for patients now is finding the trial- getting increasingly hard now- too many choices and hard to pick one over the other- #lcsm |
| Anita Figueras @scifiknitter I've been thinking that Canada probably has a lot to share with regionalization efforts, #lcsm |
| #LCSM Chat @lcsmchat RT @GraceCordovano: @BrendonStilesMD @plh4lisa @CUCancerCenter Many considerations here. Will leaving early & often be frowned upon at work… |
| #LCSM Chat @lcsmchat RT @plh4lisa: @DavidCookeMD @lyft @Uber For last couple montgs and through Feb I get a 30% @Uber discount to approved @uchealth buildings.… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: Thanks to all of the #lcsm community who joined. And thanks to all of our guests tonight. Great discussion on an imp… |
| Andrea Borondy Kitts @findlungcancer CT Developing protocols for expert care in community settings key to provide access - technology (AI, interoperability, telehealth), clinical specialty rotations, collaborations, virtual tumor boards will all help but need all stakeholders to buy in and support the vision #LCSM |
| @DavidCookeMD RT @plh4lisa: @DavidCookeMD @lyft @Uber For last couple montgs and through Feb I get a 30% @Uber discount to approved @uchealth buildings.… | |
| Janet Freeman-Daily @JFreemanDaily Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of surgery, bronchoscopy, genomic testing, etc. Even if you love your current doc--if he truly cares about patients, he'll understand. It's YOUR life. #LCSM |
| KC Dill @kasedill Happy to know that academic centers are sharing their treatment strategies with regional centers. Patients are becoming better informed by chats such as this. Thanks for the informative chat as always! #lcsm |
| Brendon Stiles @BrendonStilesMD @DavidCookeMD Should have simulated a twitter chat. Might be more useful! #MaybeNextTime #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of… |
| Andrea Borondy Kitts @findlungcancer great job moderating Brendon Thank you #lcsm |
| #LCSM Chat @lcsmchat Thank you @BrendonStilesMD for moderating this evening. Always a pleasure! #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @findlungcancer: CT Developing protocols for expert care in community settings key to provide access - technology (AI, interoperability,… |
| @DavidCookeMD #LCSM | |
| #LCSM Chat @lcsmchat RT @VamsiVelcheti: @StephenVLiu @BrendonStilesMD T5 One of the big challenges for patients now is finding the trial- getting increasingly h… |
| Brendon Stiles @BrendonStilesMD @TimAllenMDJD Thanks as always Tim! #lcsm |
| Enlightening Results 💡 @GraceCordovano @JFreemanDaily @BrendonStilesMD @plh4lisa @CUCancerCenter Janet, if you could, would you opt for telemedicine consults when appropriate? #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: I've been thinking that Canada probably has a lot to share with regionalization efforts, #lcsm https://t.co/aGuHYv8IUZ |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @VamsiVelcheti: @StephenVLiu @BrendonStilesMD T5 One of the big challenges for patients now is finding the trial- getting increasingly h… |
| #LCSM Chat @lcsmchat RT @findlungcancer: CT Developing protocols for expert care in community settings key to provide access - technology (AI, interoperability,… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of… |
| Janet Freeman-Daily @JFreemanDaily Thanks @BrendonStilesMD for great #LCSM Chat topic and moderation--you are always well prepared and informative! |
| #LCSM Chat @lcsmchat RT @kasedill: Happy to know that academic centers are sharing their treatment strategies with regional centers. Patients are becoming bette… |
| Brendon Stiles @BrendonStilesMD [REDACTED USER] @CriswellAngela @findlungcancer [REDACTED USER] [REDACTED USER] [REDACTED USER] Dogsleds? #lcsm |
| Andrea Borondy Kitts @findlungcancer RT @scifiknitter: I've been thinking that Canada probably has a lot to share with regionalization efforts, #lcsm https://t.co/aGuHYv8IUZ |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you for hosting, @BrendonStilesMD #lcsm |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne @RedGia I have a wonderful book called "Living With Cance" by 2 docs at @MGHCC, where you join palliative care because with both you can live longer. I was psyched! I took it to my doc & requested a palliative care doc. Onc told me I see too many docs already. WTF? #LCSM |
| Don Stranathan @don450sl @BrendonStilesMD @lcsmchat T5 “Knowledge is Power” #LCSM |
| Brendon Stiles @BrendonStilesMD Thanks to everyone for participating! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @GraceCordovano @BrendonStilesMD @plh4lisa @CUCancerCenter Sure, unless I'm having trouble with something that would benefit from a physical exam. #lcsm |
| Lisa Moran @plh4lisa @BrendonStilesMD Thank you @BrendonStilesMD Se you next chat. #lcsm |
| #LCSM Chat @lcsmchat RT @VirginiaMByrne: @RedGia I have a wonderful book called "Living With Cance" by 2 docs at @MGHCC, where you join palliative care because… |
| KC Dill @kasedill @JFreemanDaily Absolutely agree!! You are the best advocate for yourself and your treatment plan. Knowledge is power #lcsm |
| Brendon Stiles @BrendonStilesMD @JFreemanDaily Thank you as always for driving the conversation and for making incredibly important points! #lcsm |
| #LCSM Chat @lcsmchat RT @kasedill: @JFreemanDaily Absolutely agree!! You are the best advocate for yourself and your treatment plan. Knowledge is power #lcsm |
| Andrea Borondy Kitts @findlungcancer very short sited - were you able to insist and get a palliative care doc? #lcsm |
| Brendon Stiles @BrendonStilesMD @JFreemanDaily But I have to admit it was a stressful affair without https://t.co/RK0CDZY557!!! #lcsm |
| @DavidCookeMD >15% of our #LungCancer patients we see in our @UCDavisHealth Thoracic #Surgery clinic travel > 50 miles. Looking into video visits. #LCSM | |
| Aparna Hegde, MD @notahedge Google assistant on your phone, Google home in your home but same old epic at the hospital #lcsm |
| Brendon Stiles @BrendonStilesMD @mdwinterwv I like to think we help make the rules rather than bend them! #lcsm |
| KC Dill @kasedill Good night from Texas thank you to all moderators and participants. As always it’s been a pleasure. #lcsm. |
| Brendon Stiles @BrendonStilesMD @plh4lisa Thanks for joining Lisa! #lcsm |
| @mdwinterwv @BrendonStilesMD Agreed! Thank you! #LCSM | |
| Anita Figueras @scifiknitter @findlungcancer We don't even have much access to Uber in rural areas - population spread too thin. Up here you have to have a car, a friend, or qualify for a Social Services driver. #lcsm |
| Enlightening Results 💡 @GraceCordovano @BrendonStilesMD @STS_CTsurgery Incredibly difficult for patients to make an educated decision about a specialist or center as we do not have access to volumes of patients diagnosed, treated by a dr or #of procedures done at a center/hospital. No safety stats, rates of misdiagnosis, medical errors info #LCSM |
| Janet Freeman-Daily @JFreemanDaily @BrendonStilesMD I'll have to get used to tweetdeck. But I like that it accommodates and displays longer tweets. #lcsm |
| Vamsi Velcheti, MD MBA FASCO @VamsiVelcheti Great job moderating as always @BrendonStilesMD #lcsm |
| Enlightening Results 💡 @GraceCordovano RT @BrendonStilesMD: T2. I commented on it here: https://t.co/xPLA8iRvTR #lcsm Tough topic! |
 | SunshineKK @SunshineKK68 RT @JFreemanDaily: Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of… |
| Aparna Hegde, MD @notahedge So great to hear patient and other specialty perspectives. Thanks for putting together @BrendonStilesMD @lcsmchat @JFreemanDaily #lcsm |
| Aparna Hegde, MD @notahedge I always encourage 2nd opinions. If you find something better, good for you. If they concur, still good for you. #lcsm |
| @DavidCookeMD RT @BrendonStilesMD: @DavidCookeMD Should have simulated a twitter chat. Might be more useful! #MaybeNextTime #lcsm | |
| Janet Freeman-Daily @JFreemanDaily Transcript for 07-Feb-2019 #LCSM Chat “Is it worth the drive?” is available at https://t.co/3OF96N27B9 |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne I then researched MSKCC's palliative care & it wasn't life-affirming. I found a really good palliative caredoc at the new MD Anderson in Florham Park, NJ - and it's only 20 minutes away! #lcsm |
| @sunshinedaydrmn RT @lgreco_ny: @ASCO Why isn't research for the metastatic patient a priority? We are literally dying for a cure and identifying responder… | |
| @sunshinedaydrmn RT @METUPorg: When metastatic patient advocates come together we are going to get a lot more attention. We have been identifying responders… | |
| Enlightening Results 💡 @GraceCordovano @BrendonStilesMD @DrewMoghanaki Striking & profound. Patients & their carepartners need access to this type of information in real-time when considering options during treatment planning. #lcsm |
| KC Dill @kasedill @Actorielle Not to mention there is a special bond you share with others in similar situations. Lots of coping strategies and learning experiences. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Transcript for 07-Feb-2019 #LCSM Chat “Is it worth the drive?” is available at https://t.co/3OF96N27B9 |
| KC Dill @kasedill RT @JFreemanDaily: T5: The oncogene-focused patient groups and #lungcancer online communities can sometimes help patients identify good cli… |
| Enlightening Results 💡 @GraceCordovano @notahedge See many missed opportunities for cancer centers to meet patients where they are via social media. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Join us for our next #LCSM Chat on March 7, 2019 (we've changed to a once monthly schedule). |
| @ctsinclair RT @JFreemanDaily: Join us for our next #LCSM Chat on March 7, 2019 (we've changed to a once monthly schedule). | |
| Enlightening Results 💡 @GraceCordovano @VamsiVelcheti @BrendonStilesMD Unfortunately, not in an easily accessible manner. For ex, if I look up a #medonc or #surgonc, their bio is not very helpful to me. I want data on volume of patients, procedures, diagnoses, sub-specialties, etc. Not at a patient's fingertips which is a barrier. #lcsm |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne @findlungcancer Here's another odd response: when I recently had to insist on getting a brain scan (it had been 10 months) onc said "If there's metastasis, what are you going to do about it?" #LCSM |
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