#LCSM Transcript

Healthcare social media transcript of the #LCSM hashtag.
().
See #LCSM Influencers/Analytics.

ProfileTweet
Denise Cutlip @dennycee
@BrendonStilesMD I get 500 Internal Server Error on phone and computer #lcsm
Janet Freeman-Daily @JFreemanDaily
@steele_bob https://t.co/BnD7pcbSiT will not allow tweets over 140 characters. Does tweetdeck? #LCSM
Brendon Stiles @BrendonStilesMD
Hi everyone! Welcome to tonight" #lcsm tweet chat!
NCI Cancer Stats @NCICancerStats
In 2015, there were over 500,000 people living with lung and bronchus cancer in the US. Find more stats here: https://t.co/Uod1BWUmtw #LCSM https://t.co/eaBxQwxlbw
#LCSM Chat @lcsmchat
@dennycee @BrendonStilesMD Try https://t.co/iYgAhkZ9LG instead. #lcsm
LungCancer.net @LungCancer_HU
@dennycee @BrendonStilesMD Same here #lcsm
Brendon Stiles @BrendonStilesMD
You can read about how to participate in the chat at https://t.co/93SziNyHT6 #lcsm
Aparna Hegde, MD @notahedge
Hello from Houston #lcsm
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD Hiya Brendon! Sitting in my Washington DC hotel room! #LCSM
Brendon Stiles @BrendonStilesMD
We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm
Brendon Stiles @BrendonStilesMD
@JFreemanDaily Hi!!!! Productively I hope! #lcsm
#LCSM Chat @lcsmchat
@notahedge Welcome! Thanks for joining us this evening. #lcsm
Brendon Stiles @BrendonStilesMD
I’m your moderator Brendon Stiles, a thoracic surgeon, researcher, patient advocate. People sometimes travel to see me! #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Hi everyone! Welcome to tonight" #lcsm tweet chat!
Andrea Borondy Kitts @findlungcancer
Andrea - retired engineer turned patient advocate after losing my husband to #lungcancer #LCSM
Brendon Stiles @BrendonStilesMD
@dennycee Thanks for joining! #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: You can read about how to participate in the chat at https://t.co/93SziNyHT6 #lcsm
Brendon Stiles @BrendonStilesMD
I would like to disclose conflicts – I chair @lung_fund & have worked with @astrazeneca & @medtronic. My wife worked @pfizer and now @ppdCRO. These don’t affect opinions expressed tonight. #lcsm
邓自闲 @zixian
RT @NCICancerStats: In 2015, there were over 500,000 people living with lung and bronchus cancer in the US. Find more stats here: In 2015, there were over 500,000 people living with lung and bronchus cancer in the US. Find more stats here: https://t.co/Uod1BWUmtw #LCSM https://t.co/eaBxQwxlbw
Andrea Borondy Kitts @findlungcancer
@JFreemanDaily @BrendonStilesMD I just missed you in DC Janet - #bummer #lcsm
Janet Freeman-Daily @JFreemanDaily
Janet Freeman-Daily here in DC--writer, speaker, science geek, lung cancer patient/activist. Just participated in a meeting at the National Academy of Medicine! #LCSM
Brendon Stiles @BrendonStilesMD
In this week’s chat we hope to explore why cancer patients do or should travel for care. #lcsm https://t.co/X8h0RTd0qD
Dr Samer Al-Bothaigi @SalemSamer
RT @NCICancerStats: In 2015, there were over 500,000 people living with lung and bronchus cancer in the US. Find more stats here: In 2015, there were over 500,000 people living with lung and bronchus cancer in the US. Find more stats here: https://t.co/Uod1BWUmtw #LCSM https://t.co/eaBxQwxlbw
#LCSM Chat @lcsmchat
@BrendonStilesMD @JFreemanDaily She's on the phone with @LungCancerFaces while tweeting. Now, that's productivity! #lcsm
Brendon Stiles @BrendonStilesMD
@findlungcancer @JFreemanDaily Hi Andrea! #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: I’m your moderator Brendon Stiles, a thoracic surgeon, researcher, patient advocate. People sometimes travel to see me! #lcsm
Lisa Moran @plh4lisa
@BrendonStilesMD Hello. Stage4 nsclc egfr t790m+ patient. Dx 2015. Currently stable #LCSM
Andrea Borondy Kitts @findlungcancer
U R at the top of the list #lcsm
#LCSM Chat @lcsmchat
@tilting Welcome! #lcsm
Christine Qiong Wu @wi_qiong
@BrendonStilesMD Hello, I'm in. #lcsm
Brendon Stiles @BrendonStilesMD
We are also curious if the “volume-outcome” effect is real and whether doctors and patients support regionalization of cancer care. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm
#LCSM Chat @lcsmchat
@findlungcancer Hi Andrea! #lcsm
Brendon Stiles @BrendonStilesMD
@plh4lisa Hi Lisa! Thanks for joining! #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: I would like to disclose conflicts – I chair @lung_fund & have worked with @astrazeneca & @medtronic. My wife worked @pfizer and now @ppdCRO. These don’t affect opinions expressed tonight. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Janet Freeman-Daily here in DC--writer, speaker, science geek, lung cancer patient/activist. Just participated in a meeting at the National Academy of Medicine! #LCSM
Janet Freeman-Daily @JFreemanDaily
@findlungcancer @BrendonStilesMD I was amazed at the number of my friends who were in DC at the same time! #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: In this week’s chat we hope to explore why cancer patients do or should travel for care. #lcsm https://t.co/X8h0RTd0qD
Brendon Stiles @BrendonStilesMD
We will get started soon. First, a few reminders…#lcsm
#LCSM Chat @lcsmchat
@plh4lisa @BrendonStilesMD Hey Lisa! #lcsm
Brendon Stiles @BrendonStilesMD
Please remember to include #LCSM in ALL your tweets so the other chat participants will see them during the chat  #lcsm
#LCSM Chat @lcsmchat
@wi_qiong @BrendonStilesMD Welcome, Christine! #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: We will get started soon. First, a few reminders…#lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Tim here #lcsm
Brendon Stiles @BrendonStilesMD
@wi_qiong Hi Christine! Love that you are here! #lcsm
Brendon Stiles @BrendonStilesMD
If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm
Brendon Stiles @BrendonStilesMD
I will announce FIVE topics (T1 T2 etc). Please label your responses with T1, T2, etc to make transcript easier to follow. #lcsm
It's me! @JohnLPender
https://t.co/PT2tdeTqH1 is working. #lcsm
Laura Greco @lgreco_ny
Laura here! #lcsm
Faces of Lung Cancer @LungCancerFaces
Deana coming at you from chilly Los Angeles. I'll be manning the @lcsmchat account tonight. #lcsm
Brendon Stiles @BrendonStilesMD
We’ll start with Topic T1 in a minute. Hope to have a diverse group here tonight. Thanks to everyone for joining. #lcsm
LungCancer.net @LungCancer_HU
Margot here! #lcsm
Brendon Stiles @BrendonStilesMD
@JohnLPender The problem solver! #lcsm
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: I will announce FIVE topics (T1 T2 etc). Please label your responses with T1, T2, etc to make transcript easier to follow. #lcsm
#LCSM Chat @lcsmchat
@lgreco_ny Hi Laura! #lcsm
Brendon Stiles @BrendonStilesMD
T1. Do you travel far for cancer care? If so, why? #lcsm
Lisa Moran @plh4lisa
RT @BrendonStilesMD: We’ll start with Topic T1 in a minute. Hope to have a diverse group here tonight. Thanks to everyone for joining. #lcsm
#LCSM Chat @lcsmchat
RT @JohnLPender: https://t.co/PT2tdeTqH1 is working. #lcsm
#LCSM Chat @lcsmchat
@TimAllenMDJD Hey Tim! #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Please remember to include #LCSM in ALL your tweets so the other chat participants will see them during the chat  #lcsm
Brendon Stiles @BrendonStilesMD
@TimAllenMDJD Thanks for joining. I would travel for a great pathologist. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: I will announce FIVE topics (T1 T2 etc). Please label your responses with T1, T2, etc to make transcript easier to follow. #lcsm
Brendon Stiles @BrendonStilesMD
@LungCancerSux Hooray! Thanks for being here! #lcsm
#LCSM Chat @lcsmchat
@LungCancer_HU Hi Margot! #lcsm
Dr Samer Al-Bothaigi @SalemSamer
#lcsm hello all I am Samer a general surgery resident from Taiz ,Yemen Glad to join the chat
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Howdy #lcsm
Brendon Stiles @BrendonStilesMD
T1. Great article from the group at Yale: https://t.co/gm0F5Y11nq #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Do you travel far for cancer care? If so, why? #lcsm
Don Stranathan @don450sl
@lcsmchat Welcome everyone #LCSM
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T1. Do you travel far for cancer care? If so, why? #lcsm
Andrea Borondy Kitts @findlungcancer
T1 My husband did not travel for care but did travel for 2nd opinion & genetic testing. He was able to get the recommended care locally #lcsm
Danielle Pardue @Actorielle
Hi, my friends! #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @TimAllenMDJD Thanks for joining. I would travel for a great pathologist. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Thank you! #lcsm
Laura Greco @lgreco_ny
@BrendonStilesMD https://t.co/C829coxaub? I was having issues as well. #lcsm
Brendon Stiles @BrendonStilesMD
T1. Here they show thresholds for travel. #lcsm https://t.co/L1AibpnRP7
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T1. Great article from the group at Yale: T1. Great article from the group at Yale: https://t.co/gm0F5Y11nq #lcsm
Sanjay Mukhopadhyay @smlungpathguy
#lcsm just lurking and learning
Lung Cancer Sux @LungCancerSux
Hi All. Glorianne from CT. Patient Advocate since hubby's dx in 2010 #lcsm
Danielle Pardue @Actorielle
RT @findlungcancer: T1 My husband did not travel for care but did travel for 2nd opinion & genetic testing. He was able to get the recommended care locally #lcsm
Lisa Moran @plh4lisa
@BrendonStilesMD T1: I don't have to travel far. I'm just an hour away from my onc at @CUCancerCenter #lcsm
Brendon Stiles @BrendonStilesMD
@findlungcancer I think this is often a great strategy! #lcsm
Andrea Borondy Kitts @findlungcancer
luckily can do pathology "remotely" so access for all #lcsm
#LCSM Chat @lcsmchat
@don450sl Hey Don! Great to "see" you. #lcsm
Brendon Stiles @BrendonStilesMD
@don450sl @lcsmchat Hi Don! #lcsm
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T1. Here they show thresholds for travel. #lcsm https://t.co/L1AibpnRP7
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T1. Here they show thresholds for travel. #lcsm https://t.co/L1AibpnRP7
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Great article from the group at Yale: T1. Great article from the group at Yale: https://t.co/gm0F5Y11nq #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T1 My husband did not travel for care but did travel for 2nd opinion & genetic testing. He was able to get the recommended care locally #lcsm
#LCSM Chat @lcsmchat
@Actorielle Hey lady! #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Here they show thresholds for travel. #lcsm https://t.co/L1AibpnRP7
Brendon Stiles @BrendonStilesMD
T1. Curiously, they put “cure” in the supplemental data. Seems important. #lcsm https://t.co/xtMuBYqt6N
#LCSM Chat @lcsmchat
@smlungpathguy We love lurkers! Welcome. #lcsm
Brendon Stiles @BrendonStilesMD
@findlungcancer I was going to say..."or at least send my slides"! #lcsm
#LCSM Chat @lcsmchat
@LungCancerSux Welcome! #lcsm
#LCSM Chat @lcsmchat
RT @plh4lisa: @BrendonStilesMD T1: @BrendonStilesMD T1: I don't have to travel far. I'm just an hour away from my onc at @CUCancerCenter #lcsm
Brendon Stiles @BrendonStilesMD
@smlungpathguy thanks for hanging around! #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: luckily can do pathology "remotely" so access for all #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Curiously, they put “cure” in the supplemental data. Seems important. #lcsm https://t.co/xtMuBYqt6N
Andrea Borondy Kitts @findlungcancer
T1 yes allows people to be more comfortable at home with their social support systems intact #lcsm
Don Stranathan @don450sl
@BrendonStilesMD @lcsmchat T1 Tbanks for sharing #LCSM
Brendon Stiles @BrendonStilesMD
@plh4lisa @CUCancerCenter T1. Do most people consider "an hour" far? I would have thought so. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T1 yes allows people to be more comfortable at home with their social support systems intact #lcsm
Brendon Stiles @BrendonStilesMD
T1. You can find great docs anywhere, but I do think specialty, high volume multidisciplinary cancer practices can provide some advantages. #lcsm
Andrea Borondy Kitts @findlungcancer
T1 That was implied in my response thank you for clarifying #lcsm
Brendon Stiles @BrendonStilesMD
T1. To me, this is particularly true of technical and equipment dependent specialties such as #surgery and #radonc #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @plh4lisa @CUCancerCenter T1. Do most people consider "an hour" far? I would have thought so. #lcsm
Lisa Moran @plh4lisa
@BrendonStilesMD @CUCancerCenter Not far compared to hours/days of driving or flying to care. #lcsm
Danielle Pardue @Actorielle
@BrendonStilesMD @plh4lisa @CUCancerCenter We go exactly an hour any time we need to go to the parent hospital of our satellite. An hour is more or less expected in my town, because that's the length of time to the next sizeable city. But: most of our appts and needs can be handled locally at the satellite. #lcsm
Brendon Stiles @BrendonStilesMD
T1. High volume oncology practices also can make a big difference and may have more access to or knowledge of clinical trials. #lcsm
Dr. Jan Marie Eberth @jmeberth
#LCSM Hi everyone, cancer researcher from South Carolina on the chat line! very much looking forward to the topic tonight.
Don Stranathan @don450sl
@lcsmchat Still trying to navigate Twitter #LCSM
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD @plh4lisa @CUCancerCenter T1: I travel 1000+ miles (according to Alaska Airlines) from Seattle to Denver--because that was the closest location of the targeted therapy clinical trial I needed. #lcsm
Andrea Borondy Kitts @findlungcancer
T1 I would say one hour is local - I think of travel as something hard to go and come back the same day i.e. need an overnight stay #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Absolutely! #PatientCenteredCare #WhyPathologistsMatter #PatientsFirst #Telemedicine #Telehealth #lcsm
Lung Cancer Sux @LungCancerSux
T1 we didn't travel far for chemo RT. Biopsy local also. There were no actionable markers to test for at that time #lcsm
Brendon Stiles @BrendonStilesMD
T1. But…sometimes I think best models are those in which doctors travel to patients for routine consults! Specialty inpatient or highly technical care can then happen at regional center of excellence. #lcsm
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T1. High volume oncology practices also can make a big difference and may have more access to or knowledge of clinical trials. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
#DigitalPathology FTW #lcsm
Faces of Lung Cancer @LungCancerFaces
@BrendonStilesMD @plh4lisa @CUCancerCenter T1: In So Cal, it can easily take an hour to get to our major cancer centers. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T1. But…sometimes I think best models are those in which doctors travel to patients for routine consults! Specialty inpatient or highly technical care can then happen at regional center of excellence. #lcsm
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD @plh4lisa @CUCancerCenter T1: At home in the Puget Sound area, I travel 30 miles one way to see my pulmonologist and oncologist, but 4 miles for labs. It's complicated. #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @LungCancerSux: T1 we didn't travel far for chemo RT. Biopsy local also. There were no actionable markers to test for at that time #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: I travel 1000+ miles (according to Alaska Airlines) from Seattle to Denver--because that was the closest location of the targeted therapy clinical trial I needed. #lcsm
Brendon Stiles @BrendonStilesMD
@jmeberth Awesome! thanks for joining. #lcsm
#LCSM Chat @lcsmchat
@don450sl You're doing fine, Don. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T1. High volume oncology practices also can make a big difference and may have more access to or knowledge of clinical trials. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. You can find great docs anywhere, but I do think specialty, high volume multidisciplinary cancer practices can provide some advantages. #lcsm
Brendon Stiles @BrendonStilesMD
T1. Where are the oncologists anyway? Traveling? #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. To me, this is particularly true of technical and equipment dependent specialties such as #surgery and #radonc #lcsm
Andrea Borondy Kitts @findlungcancer
T1 another option is telehealth or virtual care for some visits #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @LungCancerFaces: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: In So Cal, it can easily take an hour to get to our major cancer centers. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. High volume oncology practices also can make a big difference and may have more access to or knowledge of clinical trials. #lcsm
#LCSM Chat @lcsmchat
RT @Actorielle: @BrendonStilesMD @plh4lisa @CUCancerCenter We go exactly an hour any time we need to go to the parent hospital of our satellite. An hour is more or less expected in my town, because that's the length of time to the next sizeable city. But: most of our appts and needs can be handled locally at the satellite. #lcsm
Laura Greco @lgreco_ny
t1: I live in a rural area. I travel 3.5- hours each way for care. I don't even have a local oncologist. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: I travel 1000+ miles (according to Alaska Airlines) from Seattle to Denver--because that was the closest location of the targeted therapy clinical trial I needed. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T1 I would say one hour is local - I think of travel as something hard to go and come back the same day i.e. need an overnight stay #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @findlungcancer: T1 another option is telehealth or virtual care for some visits #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerSux: T1 we didn't travel far for chemo RT. Biopsy local also. There were no actionable markers to test for at that time #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. But…sometimes I think best models are those in which doctors travel to patients for routine consults! Specialty inpatient or highly technical care can then happen at regional center of excellence. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: #DigitalPathology FTW #lcsm
Brendon Stiles @BrendonStilesMD
Getting ready to move to T2. Is there data to support what we do? #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @lgreco_ny: t1: t1: I live in a rural area. I travel 3.5- hours each way for care. I don't even have a local oncologist. #lcsm
Lung Cancer Sux @LungCancerSux
T1: chemo and RT 15-20 mn from hubby's place of work #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: In So Cal, it can easily take an hour to get to our major cancer centers. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: @BrendonStilesMD @plh4lisa @CUCancerCenter T1: At home in the Puget Sound area, I travel 30 miles one way to see my pulmonologist and oncologist, but 4 miles for labs. It's complicated. #LCSM
Brendon Stiles @BrendonStilesMD
@lgreco_ny Wow! Out of choice or absence? #lcsm
Brendon Stiles @BrendonStilesMD
T2. Is there data supporting the concept that surgery/oncology/radiation oncology results are better at high volume, specialty centers? #lcsm
Laura Greco @lgreco_ny
@BrendonStilesMD @plh4lisa @CUCancerCenter T1: I don't consider that far. I drove that much daily for my commute. #lcsm
Dr. Jan Marie Eberth @jmeberth
@lgreco_ny Good question! #LCSM I would love to hear more about your experiences.
#LCSM Chat @lcsmchat
@BrendonStilesMD Jack @JackWestMD is supposed to be here. He may be on later. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. Is there data supporting the concept that surgery/oncology/radiation oncology results are better at high volume, specialty centers? #lcsm
Brendon Stiles @BrendonStilesMD
T2. This is what got me thinking about the question from #STS2019. @STS_CTsurgery https://t.co/l7l0TN26dj #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T1 another option is telehealth or virtual care for some visits #lcsm
#LCSM Chat @lcsmchat
RT @lgreco_ny: t1: t1: I live in a rural area. I travel 3.5- hours each way for care. I don't even have a local oncologist. #lcsm
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T2. Is there data supporting the concept that surgery/oncology/radiation oncology results are better at high volume, specialty centers? #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerSux: T1: T1: chemo and RT 15-20 mn from hubby's place of work #lcsm
Brendon Stiles @BrendonStilesMD
T1. Already amazing to me what some consider far and some don't! #lcsm
Andrea Borondy Kitts @findlungcancer
T1 it also depends on the type of care -- radiation is hard bc often can be every day for many weeks, with some new modalities it is easier with higher localized doses and fewer visits - surgery is special - need to go to the best wherever theyt are #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Is there data supporting the concept that surgery/oncology/radiation oncology results are better at high volume, specialty centers? #lcsm
Aparna Hegde, MD @notahedge
T1: i have worked in both community and academic setting. From a med onc standpoint, large academic centers should partner with the community to make cancer care more accessible #lcsm
Brendon Stiles @BrendonStilesMD
T2. In @STS_CTsurgery study, regionalization of lung cancer surgery led to: -more minimally invasive surgery -shorter hospital stays -less complications #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Already amazing to me what some consider far and some don't! #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. This is what got me thinking about the question from #STS2019. @STS_CTsurgery https://t.co/l7l0TN26dj #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T1 it also depends on the type of care -- radiation is hard bc often can be every day for many weeks, with some new modalities it is easier with higher localized doses and fewer visits - surgery is special - need to go to the best wherever theyt are #LCSM
#LCSM Chat @lcsmchat
RT @notahedge: T1: T1: i have worked in both community and academic setting. From a med onc standpoint, large academic centers should partner with the community to make cancer care more accessible #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. In @STS_CTsurgery study, regionalization of lung cancer surgery led to: -more minimally invasive surgery -shorter hospital stays -less complications #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. In @STS_CTsurgery study, regionalization of lung cancer surgery led to: -more minimally invasive surgery -shorter hospital stays -less complications #lcsm
Brendon Stiles @BrendonStilesMD
T2. I commented on it here: https://t.co/xPLA8iRvTR #lcsm Tough topic!
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @notahedge: T1: T1: i have worked in both community and academic setting. From a med onc standpoint, large academic centers should partner with the community to make cancer care more accessible #lcsm
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD I was able to see my #radonc, have #chemo, and get scans at a local clinic (12 mi and 4 mi, respectively), but my oncologist doesn't come to my local clinic, so I drive to him (30 miles). #LCSM
Brendon Stiles @BrendonStilesMD
T2. Regionalization of lung cancer surgery is also already a “thing” in Canada. @CTS_SCT @ThoracicsCanada #lcsm https://t.co/YYlE3pKkzv
Andrea Borondy Kitts @findlungcancer
yes - surgery I think is unique and patients should travel if required to get to an experienced thoracic surgeon with good outcomes #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. I commented on it here: T2. I commented on it here: https://t.co/xPLA8iRvTR #lcsm Tough topic!
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: @BrendonStilesMD I was able to see my #radonc, have #chemo, and get scans at a local clinic (12 mi and 4 mi, respectively), but my oncologist doesn't come to my local clinic, so I drive to him (30 miles). #LCSM
Brendon Stiles @BrendonStilesMD
@notahedge Totally, totally agree. #lcsm
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: T2. In @STS_CTsurgery study, regionalization of lung cancer surgery led to: -more minimally invasive surgery -shorter hospital stays -less complications #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. I commented on it here: T2. I commented on it here: https://t.co/xPLA8iRvTR #lcsm Tough topic!
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @BrendonStilesMD I was able to see my #radonc, have #chemo, and get scans at a local clinic (12 mi and 4 mi, respectively), but my oncologist doesn't come to my local clinic, so I drive to him (30 miles). #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Regionalization of lung cancer surgery is also already a “thing” in Canada. @CTS_SCT @ThoracicsCanada #lcsm https://t.co/YYlE3pKkzv
#LCSM Chat @lcsmchat
RT @findlungcancer: yes - surgery I think is unique and patients should travel if required to get to an experienced thoracic surgeon with good outcomes #lcsm
Matthew Steliga MD FACS @SteligaMD
RT @BrendonStilesMD: T2. In @STS_CTsurgery study, regionalization of lung cancer surgery led to: -more minimally invasive surgery -shorter hospital stays -less complications #lcsm
Don Stranathan @don450sl
@lcsmchat T1 I travel for advocacy which gives me access to the top professionals in lung cancer research #LCSM
Brendon Stiles @BrendonStilesMD
T2. Here is one of the seminal papers on surgical volume outcome effects (Birkmeyer 2002, @NEJM) #lcsm https://t.co/E5ssMbTlo6
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD @plh4lisa @CUCancerCenter "One Hour" can be 15 miles on a bad traffic day! #LCSM
KC Dill @kasedill
Hello from Tx #lcsm
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: T2. I commented on it here: T2. I commented on it here: https://t.co/xPLA8iRvTR #lcsm Tough topic!
Danielle Pardue @Actorielle
RT @notahedge: T1: T1: i have worked in both community and academic setting. From a med onc standpoint, large academic centers should partner with the community to make cancer care more accessible #lcsm
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T2. In @STS_CTsurgery study, regionalization of lung cancer surgery led to: -more minimally invasive surgery -shorter hospital stays -less complications #lcsm
#LCSM Chat @lcsmchat
RT @don450sl: @lcsmchat T1 I travel for advocacy which gives me access to the top professionals in lung cancer research #LCSM
Brendon Stiles @BrendonStilesMD
T2. Embarrassed to show this mortality rate from 2002 (@DrewMoghanaki will probably use against me), but here was “volume outcome” effect for lung resection. #lcsm https://t.co/rphBe2UpUK
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @BrendonStilesMD @plh4lisa @CUCancerCenter "One Hour" can be 15 miles on a bad traffic day! #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Here is one of the seminal papers on surgical volume outcome effects (Birkmeyer 2002, @NEJM) #lcsm https://t.co/E5ssMbTlo6
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. Here is one of the seminal papers on surgical volume outcome effects (Birkmeyer 2002, @NEJM) #lcsm https://t.co/E5ssMbTlo6
Laura Greco @lgreco_ny
@jmeberth I consider myself having a rare disease. Local oncologists might have seen one or two of me during their career. Not good enough. I wanted to go to someone who specialized in lung cancer and specifically my kind of LC. #lcsm
Peiyin Hung @PeiyinHung
RT @BrendonStilesMD: T1. Great article from the group at Yale: T1. Great article from the group at Yale: https://t.co/gm0F5Y11nq #lcsm
Brendon Stiles @BrendonStilesMD
@findlungcancer Well...I think so. #lcsm
Vamsi Velcheti, MD @VamsiVelcheti
Joining from NYC #lcsm
#LCSM Chat @lcsmchat
@kasedill Welcome! Thanks for joining us. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Embarrassed to show this mortality rate from 2002 (@DrewMoghanaki will probably use against me), but here was “volume outcome” effect for lung resection. #lcsm https://t.co/rphBe2UpUK
Brendon Stiles @BrendonStilesMD
@findlungcancer But it may not be totally unique! #lcsm
#LCSM Chat @lcsmchat
RT @lgreco_ny: @jmeberth I consider myself having a rare disease. Local oncologists might have seen one or two of me during their career. Not good enough. I wanted to go to someone who specialized in lung cancer and specifically my kind of LC. #lcsm
Aparna Hegde, MD @notahedge
For most patients in eastern NC, enrolling in a clinical trial is unthinkable. Distance, finances, lack of social support, lack of insurance. Now at MDACC, it's still the same issue. Although such a huge institution, it can't reach the most needy #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. Embarrassed to show this mortality rate from 2002 (@DrewMoghanaki will probably use against me), but here was “volume outcome” effect for lung resection. #lcsm https://t.co/rphBe2UpUK
Anita Figueras @scifiknitter
T1 Anita from rural northern NY: I travel 45 minutes to my local community cancer center, and all day (350+ miles) for periodic consults/scans in NYC. #lcsm
Brendon Stiles @BrendonStilesMD
T2. Fortunately, current surgical mortality is much lower even at low volume centers. Notably, this makes it a tough endpoint to use. #lcsm
#LCSM Chat @lcsmchat
@VamsiVelcheti Welcome Doctor! #lcsm
#LCSM Chat @lcsmchat
RT @notahedge: For most patients in eastern NC, enrolling in a clinical trial is unthinkable. Distance, finances, lack of social support, lack of insurance. Now at MDACC, it's still the same issue. Although such a huge institution, it can't reach the most needy #lcsm
Matthew Steliga MD FACS @SteligaMD
Joining in. A great topic to discuss. #lcsm
#LCSM Chat @lcsmchat
RT @scifiknitter: T1 Anita from rural northern NY: T1 Anita from rural northern NY: I travel 45 minutes to my local community cancer center, and all day (350+ miles) for periodic consults/scans in NYC. #lcsm
Andrea Borondy Kitts @findlungcancer
this is not unusual for any type of surgery - there is a learning curve and recency of experience effect - it probably washes out after about 100-200 cases #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Fortunately, current surgical mortality is much lower even at low volume centers. Notably, this makes it a tough endpoint to use. #lcsm
Brendon Stiles @BrendonStilesMD
T2. This is important. Some have reasonably argued that most volume effect studies are flawed and not well controlled for types of patients that can travel. Biased data. #lcsm
Laura Greco @lgreco_ny
@BrendonStilesMD Out of choice. The survival stats are so dire for LC, that I pledged doing whatever it takes to improve my odds. That included moving to Boston for six plus weeks. #lcsm
#LCSM Chat @lcsmchat
@SteligaMD Thanks for joining us! #lcsm
Brendon Stiles @BrendonStilesMD
@VamsiVelcheti Finally an oncologist! Tell them it is important WHO gives the drugs! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @findlungcancer: this is not unusual for any type of surgery - there is a learning curve and recency of experience effect - it probably washes out after about 100-200 cases #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @lgreco_ny: @BrendonStilesMD Out of choice. The survival stats are so dire for LC, that I pledged doing whatever it takes to improve my odds. That included moving to Boston for six plus weeks. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: this is not unusual for any type of surgery - there is a learning curve and recency of experience effect - it probably washes out after about 100-200 cases #lcsm
Lisa Moran @plh4lisa
@findlungcancer T2: I traveled to a different state for a brain surgery unrelated to #LungCancer would do the same for LC if necessary. #lcsm
Laura Greco @lgreco_ny
@RedGia I can do it in one day if everything aligns. It's worth it to me. #lcsm.
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. This is important. Some have reasonably argued that most volume effect studies are flawed and not well controlled for types of patients that can travel. Biased data. #lcsm
#LCSM Chat @lcsmchat
RT @lgreco_ny: @BrendonStilesMD Out of choice. The survival stats are so dire for LC, that I pledged doing whatever it takes to improve my odds. That included moving to Boston for six plus weeks. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @VamsiVelcheti Finally an oncologist! Tell them it is important WHO gives the drugs! #lcsm
Vamsi Velcheti, MD @VamsiVelcheti
@BrendonStilesMD Are hospital/surgeon specific data available for patients to review? #LCSM
Brendon Stiles @BrendonStilesMD
T2. Good review on the subject in thoracic surgery: #lcsm https://t.co/tPDuH0QtSr
#LCSM Chat @lcsmchat
RT @plh4lisa: @findlungcancer T2: @findlungcancer T2: I traveled to a different state for a brain surgery unrelated to #LungCancer would do the same for LC if necessary. #lcsm
Dr. Jan Marie Eberth @jmeberth
@findlungcancer #LCSM One critique I hear from rural physicians though is not that they don’t want to use telehealth or even have the right equipment... rather they complain that there are not available specialists to take their calls (too busy with their own patients back at the cancer center).
Andrea Borondy Kitts @findlungcancer
this needs to change for 2 reasons 1) provide access to all in need and 2) get more generalizable results if enroll diverse populations #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. Good review on the subject in thoracic surgery: T2. Good review on the subject in thoracic surgery: #lcsm https://t.co/tPDuH0QtSr
#LCSM Chat @lcsmchat
RT @VamsiVelcheti: @BrendonStilesMD Are hospital/surgeon specific data available for patients to review? #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Good review on the subject in thoracic surgery: T2. Good review on the subject in thoracic surgery: #lcsm https://t.co/tPDuH0QtSr
#LCSM Chat @lcsmchat
RT @jmeberth: @findlungcancer #LCSM One critique I hear from rural physicians though is not that they don’t want to use telehealth or even have the right equipment... rather they complain that there are not available specialists to take their calls (too busy with their own patients back at the cancer center).
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @jmeberth: @findlungcancer #LCSM One critique I hear from rural physicians though is not that they don’t want to use telehealth or even have the right equipment... rather they complain that there are not available specialists to take their calls (too busy with their own patients back at the cancer center).
Aparna Hegde, MD @notahedge
RT @BrendonStilesMD: T2. Good review on the subject in thoracic surgery: T2. Good review on the subject in thoracic surgery: #lcsm https://t.co/tPDuH0QtSr
#LCSM Chat @lcsmchat
RT @findlungcancer: this needs to change for 2 reasons 1) provide access to all in need and 2) get more generalizable results if enroll diverse populations #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @findlungcancer: this needs to change for 2 reasons 1) provide access to all in need and 2) get more generalizable results if enroll diverse populations #lcsm
Brendon Stiles @BrendonStilesMD
T2. Our group has also written that patient factors, rather than volume, have more of an effect on short term outcomes. #lcsm https://t.co/jjciIXNbT2
Danielle Pardue @Actorielle
RT @lgreco_ny: @jmeberth I consider myself having a rare disease. Local oncologists might have seen one or two of me during their career. Not good enough. I wanted to go to someone who specialized in lung cancer and specifically my kind of LC. #lcsm
Danielle Pardue @Actorielle
RT @notahedge: For most patients in eastern NC, enrolling in a clinical trial is unthinkable. Distance, finances, lack of social support, lack of insurance. Now at MDACC, it's still the same issue. Although such a huge institution, it can't reach the most needy #lcsm
Anita Figueras @scifiknitter
@findlungcancer This is pretty much my model, although a couple of clinical trials have demanded more trips to the academic center. It has worked well. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. Our group has also written that patient factors, rather than volume, have more of an effect on short term outcomes. #lcsm https://t.co/jjciIXNbT2
Lisa Moran @plh4lisa
@BrendonStilesMD I would think an educated patient would increase survival chances with travel or not #lcsm
Brendon Stiles @BrendonStilesMD
@jmeberth @findlungcancer Good point. We need to be sensitive to their time too and to communicate better. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Our group has also written that patient factors, rather than volume, have more of an effect on short term outcomes. #lcsm https://t.co/jjciIXNbT2
Lung Cancer Sux @LungCancerSux
T2: traveled for surgery because local surgeons chose not to operate. Happy with their decisions #lcsm
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: T2. Good review on the subject in thoracic surgery: T2. Good review on the subject in thoracic surgery: #lcsm https://t.co/tPDuH0QtSr
KC Dill @kasedill
T1 Diagnosed at a regional cancer center. Sold our home to be closer to The Medical Center in Houston. We are now settled outside of Houston. Cancer uprooted our lives and created a new one. Best thing we ever did #lcsm
#LCSM Chat @lcsmchat
RT @scifiknitter: @findlungcancer This is pretty much my model, although a couple of clinical trials have demanded more trips to the academic center. It has worked well. #lcsm
Danielle Pardue @Actorielle
RT @lgreco_ny: @BrendonStilesMD Out of choice. The survival stats are so dire for LC, that I pledged doing whatever it takes to improve my odds. That included moving to Boston for six plus weeks. #lcsm
Brendon Stiles @BrendonStilesMD
T2. Therefore, we aren’t sure that “minimum volume standards” make sense (or at least for some of the cutoffs that have been proposed). #lcsm https://t.co/cpVhygodXJ
#LCSM Chat @lcsmchat
RT @LungCancerSux: T2: T2: traveled for surgery because local surgeons chose not to operate. Happy with their decisions #lcsm
Aparna Hegde, MD @notahedge
RT @findlungcancer: this needs to change for 2 reasons 1) provide access to all in need and 2) get more generalizable results if enroll diverse populations #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @kasedill: T1 Diagnosed at a regional cancer center. Sold our home to be closer to The Medical Center in Houston. We are now settled outside of Houston. Cancer uprooted our lives and created a new one. Best thing we ever did #lcsm
Dr. Jan Marie Eberth @jmeberth
@VamsiVelcheti @BrendonStilesMD Hospital and Physician Compare databases from CMS are good, but don’t always have information on disease specific outcomes. #LCSM
#LCSM Chat @lcsmchat
RT @kasedill: T1 Diagnosed at a regional cancer center. Sold our home to be closer to The Medical Center in Houston. We are now settled outside of Houston. Cancer uprooted our lives and created a new one. Best thing we ever did #lcsm
Danielle Pardue @Actorielle
RT @plh4lisa: @findlungcancer T2: @findlungcancer T2: I traveled to a different state for a brain surgery unrelated to #LungCancer would do the same for LC if necessary. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Therefore, we aren’t sure that “minimum volume standards” make sense (or at least for some of the cutoffs that have been proposed). #lcsm https://t.co/cpVhygodXJ
Brendon Stiles @BrendonStilesMD
T2. And another seminal paper from @peterbachmd on what I consider the most important outcome – survival. #lcsm https://t.co/Y69qKtdiUs
Andrea Borondy Kitts @findlungcancer
yes & experienced surgeons may be better at selecting the appropriate patients who will benefit from surgery #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. Therefore, we aren’t sure that “minimum volume standards” make sense (or at least for some of the cutoffs that have been proposed). #lcsm https://t.co/cpVhygodXJ
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. And another seminal paper from @peterbachmd on what I consider the most important outcome – survival. #lcsm https://t.co/Y69qKtdiUs
Seth Krantz, MD, FACS @SethBKrantz
RT @BrendonStilesMD: T2. In @STS_CTsurgery study, regionalization of lung cancer surgery led to: -more minimally invasive surgery -shorter hospital stays -less complications #lcsm
Lung Cancer Sux @LungCancerSux
RT @findlungcancer: yes & experienced surgeons may be better at selecting the appropriate patients who will benefit from surgery #lcsm
Dr. Jan Marie Eberth @jmeberth
@lgreco_ny @BrendonStilesMD That’s amazing. I wonder how many patients could do this though - how would it work financially? Childcare, etc? #LCSM
Andrea Borondy Kitts @findlungcancer
@kasedill why -- because you got better care? #lcsm
Matthew Steliga MD FACS @SteligaMD
@findlungcancer Absolutely agree. #lcsm
gilberto lopes @GlopesMd
RT @BrendonStilesMD: T1. Do you travel far for cancer care? If so, why? #lcsm
Brendon Stiles @BrendonStilesMD
T2. Here is a provocative paper just published from @JTOonline @RamalingamMD suggesting that metastatic lung cancer patients have better survival when treated at academic centers #lcsm https://t.co/GLzxIOatp7
Vamsi Velcheti, MD @VamsiVelcheti
T2: patient specific factors are important to consider- outcomes could be better at major centers of excellence — at least partly because they are more healthy & savvy patients who travel distances to larger cancer centers #LCSM
Dr. Jan Marie Eberth @jmeberth
@BrendonStilesMD Although there have been good attempts to deal with this statistically (propensity analysis for example)... to make the data less biased. #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. Here is a provocative paper just published from @JTOonline @RamalingamMD suggesting that metastatic lung cancer patients have better survival when treated at academic centers #lcsm https://t.co/GLzxIOatp7
#LCSM Chat @lcsmchat
RT @jmeberth: @VamsiVelcheti @BrendonStilesMD Hospital and Physician Compare databases from CMS are good, but don’t always have information on disease specific outcomes. #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. And another seminal paper from @peterbachmd on what I consider the most important outcome – survival. #lcsm https://t.co/Y69qKtdiUs
#LCSM Chat @lcsmchat
RT @findlungcancer: yes & experienced surgeons may be better at selecting the appropriate patients who will benefit from surgery #lcsm
Aparna Hegde, MD @notahedge
It's great that @kasedill was able to do this. But many cannot. Cannot speak for surgery and radiation oncology. But med onc can and should be a community - academia partnership #lcsm
Brendon Stiles @BrendonStilesMD
T2. Small but meaningful differences. Seem to be widening with time. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Here is a provocative paper just published from @JTOonline @RamalingamMD suggesting that metastatic lung cancer patients have better survival when treated at academic centers #lcsm https://t.co/GLzxIOatp7
#LCSM Chat @lcsmchat
RT @VamsiVelcheti: T2: T2: patient specific factors are important to consider- outcomes could be better at major centers of excellence — at least partly because they are more healthy & savvy patients who travel distances to larger cancer centers #LCSM
#LCSM Chat @lcsmchat
RT @jmeberth: @BrendonStilesMD Although there have been good attempts to deal with this statistically (propensity analysis for example)... to make the data less biased. #LCSM
#LCSM Chat @lcsmchat
RT @notahedge: It's great that @kasedill was able to do this. But many cannot. Cannot speak for surgery and radiation oncology. But med onc can and should be a community - academia partnership #lcsm
KC Dill @kasedill
@findlungcancer Absolutely! The care I receive is unparalleled in my region. #lcsm
Brendon Stiles @BrendonStilesMD
T2. The wrap up. #lcsm https://t.co/FK554NAdMQ
Anita Figueras @scifiknitter
T2 I don't know if there is data supporting travel. I do know that the treatment that is best for you may only be available at a large center. My husband had to travel to get low-dose brachytherapy for prostate cancer, simply not available at the local center. #lcsm
Brendon Stiles @BrendonStilesMD
T3. Let's here about the bad stuff. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T2. The wrap up. #lcsm https://t.co/FK554NAdMQ
#LCSM Chat @lcsmchat
@VirginiaMByrne Welcome, Ginny! Be sure to add #LCSM to your tweets so all can see.
Brendon Stiles @BrendonStilesMD
T3. What are the downsides of and obstacles to traveling for your cancer care? #lcsm
Andrea Borondy Kitts @findlungcancer
T2 good point frail patients with poor prognosis may elect or may not be able to travel #lcsm
Laura Greco @lgreco_ny
@jmeberth @BrendonStilesMD I had a 2 and 6 year old at time, and we had to have parents fly in to take care of either them or me. Plus, enormously expensive to stay in Boston. This proposal to regionalize care will go nowhere. Almost no one near me can or will make tremendous time commitment. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Small but meaningful differences. Seem to be widening with time. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T3. Let's here about the bad stuff. #lcsm
KC Dill @kasedill
@notahedge Absolutely, I realize I am very very fortunate.. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. The wrap up. #lcsm https://t.co/FK554NAdMQ
#LCSM Chat @lcsmchat
RT @scifiknitter: T2 I don't know if there is data supporting travel. I do know that the treatment that is best for you may only be available at a large center. My husband had to travel to get low-dose brachytherapy for prostate cancer, simply not available at the local center. #lcsm
Brendon Stiles @BrendonStilesMD
RT @VamsiVelcheti: T2: T2: patient specific factors are important to consider- outcomes could be better at major centers of excellence — at least partly because they are more healthy & savvy patients who travel distances to larger cancer centers #LCSM
Dr. Jan Marie Eberth @jmeberth
@findlungcancer I wonder if we should put more thoracic surgery residency programs in less metropolitan areas though. Physicians are more likely to practice where they were trained. #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T3. What are the downsides of and obstacles to traveling for your cancer care? #lcsm
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T3. What are the downsides of and obstacles to traveling for your cancer care? #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. What are the downsides of and obstacles to traveling for your cancer care? #lcsm
Brendon Stiles @BrendonStilesMD
T3. It turns out that it can be pretty painful getting in to #NewYorkCity (and other big cities too)! #lcsm https://t.co/3m2nVzOt2K
#LCSM Chat @lcsmchat
RT @findlungcancer: T2 good point frail patients with poor prognosis may elect or may not be able to travel #lcsm
#LCSM Chat @lcsmchat
RT @lgreco_ny: @jmeberth @BrendonStilesMD I had a 2 and 6 year old at time, and we had to have parents fly in to take care of either them or me. Plus, enormously expensive to stay in Boston. This proposal to regionalize care will go nowhere. Almost no one near me can or will make tremendous time commitment. #lcsm
#LCSM Chat @lcsmchat
RT @jmeberth: @findlungcancer I wonder if we should put more thoracic surgery residency programs in less metropolitan areas though. Physicians are more likely to practice where they were trained. #LCSM
Anita Figueras @scifiknitter
RT @findlungcancer: this needs to change for 2 reasons 1) provide access to all in need and 2) get more generalizable results if enroll diverse populations #lcsm
Andrea Borondy Kitts @findlungcancer
#LCSM @CrisAlvaradoMD
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. It turns out that it can be pretty painful getting in to #NewYorkCity (and other big cities too)! #lcsm https://t.co/3m2nVzOt2K
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T3. It turns out that it can be pretty painful getting in to #NewYorkCity (and other big cities too)! #lcsm https://t.co/3m2nVzOt2K
Janet Freeman-Daily @JFreemanDaily
Downsides of traveling with cancer: scheduling flights, weather problems, feeling crappy away from home, unsure what to do when you have problems at home & onc is far away, cost of travel & hotel, time away from family. #LCSM
Brendon Stiles @BrendonStilesMD
T3. And the Parking! #lcsm https://t.co/VXW8Bv6NUG
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Downsides of traveling with cancer: Downsides of traveling with cancer: scheduling flights, weather problems, feeling crappy away from home, unsure what to do when you have problems at home & onc is far away, cost of travel & hotel, time away from family. #LCSM
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
@BrendonStilesMD Catching up here on a juicy discussion while troops painfully delay bedtime. #lcsm https://t.co/z2Hrn7ay5i
Laura Greco @lgreco_ny
T3: It is so incredibly expensive and disruptive to travel for this. However, field is changing so fast that it isn't realistic to expect a local oncologist to keep abreast of lung cancer, much less my type of LC. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. And the Parking! #lcsm https://t.co/VXW8Bv6NUG
Brendon Stiles @BrendonStilesMD
T3. Without a doubt, bigger far away hospitals can feel impersonal and a bit like a factory. How do people feel about this aspect? #lcsm https://t.co/mSeGwN58hk
#LCSM Chat @lcsmchat
RT @lgreco_ny: T3: T3: It is so incredibly expensive and disruptive to travel for this. However, field is changing so fast that it isn't realistic to expect a local oncologist to keep abreast of lung cancer, much less my type of LC. #lcsm
Lisa Moran @plh4lisa
@BrendonStilesMD T3: the #1 downside for me would be finances. The costs of travel and lodging would be a major factor in my decision to travel for care or not. #lcsm
Brendon Stiles @BrendonStilesMD
@kasedill Wow! #lcsm
Lung Cancer #1 cancer killer of women @VirginiaMByrne
#LCSM Even from New Jersey!
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T3. Without a doubt, bigger far away hospitals can feel impersonal and a bit like a factory. How do people feel about this aspect? #lcsm https://t.co/mSeGwN58hk
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. Without a doubt, bigger far away hospitals can feel impersonal and a bit like a factory. How do people feel about this aspect? #lcsm https://t.co/mSeGwN58hk
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @plh4lisa: @BrendonStilesMD T3: @BrendonStilesMD T3: the #1 downside for me would be finances. The costs of travel and lodging would be a major factor in my decision to travel for care or not. #lcsm
#LCSM Chat @lcsmchat
RT @plh4lisa: @BrendonStilesMD T3: @BrendonStilesMD T3: the #1 downside for me would be finances. The costs of travel and lodging would be a major factor in my decision to travel for care or not. #lcsm
Brendon Stiles @BrendonStilesMD
T3. When my dad had lung cancer, although we got opinions from big centers, we elected for him to get treatment locally. He just didn't want to be away from home. #lcsm
Janet Freeman-Daily @JFreemanDaily
T3: Another downside of traveling w/cancer: sometimes side effects of treatment, symptoms, or cancer progression prevent you from going home after remote visit to specialist. #lcsm
Andrea Borondy Kitts @findlungcancer
T3 cost, loss of social system, harder to get food and other needs met, tiring, complicated logistics, difficult traveling when not feeling well, finding support to take care of people/things back home #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T3. When my dad had lung cancer, although we got opinions from big centers, we elected for him to get treatment locally. He just didn't want to be away from home. #lcsm
Brendon Stiles @BrendonStilesMD
T3. We felt like the upsides of traveling for any marginal improvement weren’t worth it and he had a great local oncologist who he trusted and was comfortable with. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. When my dad had lung cancer, although we got opinions from big centers, we elected for him to get treatment locally. He just didn't want to be away from home. #lcsm
Brendon Stiles @BrendonStilesMD
@JFreemanDaily Great and probably underappreciated point! #lcsm
Danielle Pardue @Actorielle
them they just do whatever can be done at that hospital, and that's the end of the story. There is rarely any thought given to the strengths of the hospital or a questioning of the tx plan. #lcsm
Danielle Pardue @Actorielle
(Thread) #lcsm I don't know the academic words for this, but here's my anecdotal take, having grown up rural and having had this conversation hundreds of times: folks go to the hospital they've always gone to, for any reason from a broken finger to LC, and
Don Stranathan @don450sl
@lcsmchat When In NY taking Penny to MSK in the city was a nightmare. Always a 12 hour day #LCSM
Aparna Hegde, MD @notahedge
@BrendonStilesMD Perhaps this has to do with patient factors. Patients who can travel to academic centers may have lower symptom burden, less comorbidities, better organ function, more social and financial support, etc..Wonder if there is any insight into possible reasons for the findings #lcsm
Janet Freeman-Daily @JFreemanDaily
T3: When I was first flying to Denver and still dealing with aftermath of pneumonitis, my O2 levels were in the 80s (Denver is a mile high). #lcsm
Brendon Stiles @BrendonStilesMD
@lgreco_ny This is true. No one's fault. Field is just moving fast. Probably too fast for non-specialists! #lcsm
Laura Greco @lgreco_ny
@JFreemanDaily You definitely have to be flexible! I learned early to bring extra clothes even for "day" trips. #lcsm
Anita Figueras @scifiknitter
T3 A big issue is the financial cost of traveling for care. I'm VERY fortunate, my insurance reimburses for travel costs when I travel to a NCI designated comprehensive center. I'm VERY aware of how privileged I am. #lcsm
Brendon Stiles @BrendonStilesMD
@JFreemanDaily Wait a minute! Denver is mile high?!?! Yikes. #lcsm
Andrea Borondy Kitts @findlungcancer
T3 I was fortunate - our oncologist relied on me to do research on different options, then he checked them out and facilitated getting the treatment - win-win - he didn't have time #lcsm
Brendon Stiles @BrendonStilesMD
T3. Of course, much has happened in lung cancer since my dad passed away and there are many more treatment options to be considered. #lcsm
Brendon Stiles @BrendonStilesMD
@lgreco_ny @JFreemanDaily It is humbling what patients go through. Good for doctors to remember as they work through their busy days! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @findlungcancer: T3 I was fortunate - our oncologist relied on me to do research on different options, then he checked them out and facilitated getting the treatment - win-win - he didn't have time #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3: Another downside of traveling w/cancer: T3: Another downside of traveling w/cancer: sometimes side effects of treatment, symptoms, or cancer progression prevent you from going home after remote visit to specialist. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T3 cost, loss of social system, harder to get food and other needs met, tiring, complicated logistics, difficult traveling when not feeling well, finding support to take care of people/things back home #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. We felt like the upsides of traveling for any marginal improvement weren’t worth it and he had a great local oncologist who he trusted and was comfortable with. #lcsm
Janet Freeman-Daily @JFreemanDaily
T3: One time I was traveling to Denver for clinical trial visit, they were having a blizzard! Thank goodness @AlaskaAir know hows to fly in winter weather--all other airlines cancelled their flights, but I got there just a few hours late. #lcsm
#LCSM Chat @lcsmchat
RT @Actorielle: (Thread) #lcsm I don't know the academic words for this, but here's my anecdotal take, having grown up rural and having had this conversation hundreds of times: folks go to the hospital they've always gone to, for any reason from a broken finger to LC, and
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: @lgreco_ny @JFreemanDaily It is humbling what patients go through. Good for doctors to remember as they work through their busy days! #lcsm
#LCSM Chat @lcsmchat
RT @Actorielle: them they just do whatever can be done at that hospital, and that's the end of the story. There is rarely any thought given to the strengths of the hospital or a questioning of the tx plan. #lcsm
Anita Figueras @scifiknitter
RT @JFreemanDaily: Downsides of traveling with cancer: Downsides of traveling with cancer: scheduling flights, weather problems, feeling crappy away from home, unsure what to do when you have problems at home & onc is far away, cost of travel & hotel, time away from family. #LCSM
#LCSM Chat @lcsmchat
RT @don450sl: @lcsmchat When In NY taking Penny to MSK in the city was a nightmare. Always a 12 hour day #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3: T3: When I was first flying to Denver and still dealing with aftermath of pneumonitis, my O2 levels were in the 80s (Denver is a mile high). #lcsm
Laura Greco @lgreco_ny
Here's one downside. Because I don't get any local treatment, I am completely disconnected from local social support services. It's hard to find out about them unless hooked into local practice. #lcsm
#LCSM Chat @lcsmchat
RT @notahedge: @BrendonStilesMD Perhaps this has to do with patient factors. Patients who can travel to academic centers may have lower symptom burden, less comorbidities, better organ function, more social and financial support, etc..Wonder if there is any insight into possible reasons for the findings #lcsm
KC Dill @kasedill
@Actorielle This was the path my mother took, I witnessed her treatment and the effects. I ran to the city. It was fight and flight for me #lcsm.
#LCSM Chat @lcsmchat
RT @lgreco_ny: @JFreemanDaily You definitely have to be flexible! I learned early to bring extra clothes even for "day" trips. #lcsm
#LCSM Chat @lcsmchat
RT @scifiknitter: T3 A big issue is the financial cost of traveling for care. I'm VERY fortunate, my insurance reimburses for travel costs when I travel to a NCI designated comprehensive center. I'm VERY aware of how privileged I am. #lcsm
Brendon Stiles @BrendonStilesMD
@VamsiVelcheti Lots in some of the earlier thread. But complicated by patient factors too. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T3 I was fortunate - our oncologist relied on me to do research on different options, then he checked them out and facilitated getting the treatment - win-win - he didn't have time #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. Of course, much has happened in lung cancer since my dad passed away and there are many more treatment options to be considered. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @lgreco_ny @JFreemanDaily It is humbling what patients go through. Good for doctors to remember as they work through their busy days! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @kasedill: @Actorielle This was the path my mother took, I witnessed her treatment and the effects. I ran to the city. It was fight and flight for me #lcsm.
Brendon Stiles @BrendonStilesMD
T4. How can we best coordinate care between community and high volume regional centers? #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3: T3: One time I was traveling to Denver for clinical trial visit, they were having a blizzard! Thank goodness @AlaskaAir know hows to fly in winter weather--all other airlines cancelled their flights, but I got there just a few hours late. #lcsm
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T4. How can we best coordinate care between community and high volume regional centers? #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T4. How can we best coordinate care between community and high volume regional centers? #lcsm
#LCSM Chat @lcsmchat
RT @lgreco_ny: Here's one downside. Because I don't get any local treatment, I am completely disconnected from local social support services. It's hard to find out about them unless hooked into local practice. #lcsm
Brendon Stiles @BrendonStilesMD
T4. True coordination of care would seem to be the key. #lcsm https://t.co/K6QrYHckog
#LCSM Chat @lcsmchat
RT @kasedill: @Actorielle This was the path my mother took, I witnessed her treatment and the effects. I ran to the city. It was fight and flight for me #lcsm.
Danielle Pardue @Actorielle
@BrendonStilesMD Honest but perhaps unhelpful answer: personal relationships between the providers at each location. Talk about expediting care! #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. How can we best coordinate care between community and high volume regional centers? #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. True coordination of care would seem to be the key. #lcsm https://t.co/K6QrYHckog
Laura Greco @lgreco_ny
@BrendonStilesMD As an attorney specializing in consumer finance law, particularly mortgage servicing, I know how hard it was to keep up that tiny slice of legal heaven. We are asking oncs to be generalists when cancer care is getting increasingly specialized. #lcsm
Brendon Stiles @BrendonStilesMD
@lgreco_ny Great point. #lcsm
Andrea Borondy Kitts @findlungcancer
Travel is hard even if feeling well; if in pain or limited mobility it can be worse than an obstacle course - not for the faint of heart, always risk of being hospitalized far from home and loved ones #LCSM
#LCSM Chat @lcsmchat
RT @Actorielle: @BrendonStilesMD Honest but perhaps unhelpful answer: @BrendonStilesMD Honest but perhaps unhelpful answer: personal relationships between the providers at each location. Talk about expediting care! #lcsm
Lisa Moran @plh4lisa
@BrendonStilesMD @JFreemanDaily I live at 6035 ft. Over a mile high. #lcsm
Vamsi Velcheti, MD @VamsiVelcheti
@findlungcancer There are circumstances where it doesn’t make sense for patients to drive hours for treatment- sometimes it is just OK to have a academic oncologist coordinate care with community oncologists #LCSM The key is to have the right recommendations/plan of care
Brendon Stiles @BrendonStilesMD
T4. And have to make sure we don’t limit access for patients who can’t travel. #lcsm
Aparna Hegde, MD @notahedge
T3: I've experienced this first hand. I traveled 10 hours every 2 weeks for my ABVD. I was young, had a very supportive family and knew treatment was finite. I cannot imagine doing this indefinitely. #lcsm
Brendon Stiles @BrendonStilesMD
T4. Have to do better at shared EMR data and basic communication between doctors. #lcsm
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD T4 Coordinating care between centers was a challenge at first--still had to carry my scan CDs and lab reports between local and remote oncs. After 6 years, they just call each other. #LCSM
Anita Figueras @scifiknitter
RT @lgreco_ny: T3: T3: It is so incredibly expensive and disruptive to travel for this. However, field is changing so fast that it isn't realistic to expect a local oncologist to keep abreast of lung cancer, much less my type of LC. #lcsm
Brendon Stiles @BrendonStilesMD
T4. We particularly have to communicate potential side effects of targeted therapies and immunotherapy so that local doctors can recognize early. #lcsm
Laura Greco @lgreco_ny
@JFreemanDaily @AlaskaAir This time last year we attempted to drive home in a blizzard (that snow bomb event.) We didn't get far before we had to find a hotel. #lcsm Good times!
#LCSM Chat @lcsmchat
RT @lgreco_ny: @BrendonStilesMD As an attorney specializing in consumer finance law, particularly mortgage servicing, I know how hard it was to keep up that tiny slice of legal heaven. We are asking oncs to be generalists when cancer care is getting increasingly specialized. #lcsm
Brendon Stiles @BrendonStilesMD
RT @plh4lisa: @BrendonStilesMD @JFreemanDaily I live at 6035 ft. Over a mile high. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: Travel is hard even if feeling well; if in pain or limited mobility it can be worse than an obstacle course - not for the faint of heart, always risk of being hospitalized far from home and loved ones #LCSM
#LCSM Chat @lcsmchat
RT @VamsiVelcheti: @findlungcancer There are circumstances where it doesn’t make sense for patients to drive hours for treatment- sometimes it is just OK to have a academic oncologist coordinate care with community oncologists #LCSM The key is to have the right recommendations/plan of care
Matthew Steliga MD FACS @SteligaMD
T3: One thing we do at @uamscancer is have a nurse navigator who contacts the patient and family before visit. She is a point of contact for them; they have her contact and she guided them each step. Our RN navigator is a star! #lcsm
Andrea Borondy Kitts @findlungcancer
T4 collaborations and affiliations between community & high volume with rotations of key clinicians - identifying centers of excellence for imaging & labs & biopsies at community locations with over read by high volume centers #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T4. Have to do better at shared EMR data and basic communication between doctors. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. And have to make sure we don’t limit access for patients who can’t travel. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: @BrendonStilesMD T4 Coordinating care between centers was a challenge at first--still had to carry my scan CDs and lab reports between local and remote oncs. After 6 years, they just call each other. #LCSM
#LCSM Chat @lcsmchat
RT @notahedge: T3: T3: I've experienced this first hand. I traveled 10 hours every 2 weeks for my ABVD. I was young, had a very supportive family and knew treatment was finite. I cannot imagine doing this indefinitely. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T4. We particularly have to communicate potential side effects of targeted therapies and immunotherapy so that local doctors can recognize early. #lcsm
Janet Freeman-Daily @JFreemanDaily
RT @VamsiVelcheti: @findlungcancer There are circumstances where it doesn’t make sense for patients to drive hours for treatment- sometimes it is just OK to have a academic oncologist coordinate care with community oncologists #LCSM The key is to have the right recommendations/plan of care
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. Have to do better at shared EMR data and basic communication between doctors. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @BrendonStilesMD T4 Coordinating care between centers was a challenge at first--still had to carry my scan CDs and lab reports between local and remote oncs. After 6 years, they just call each other. #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. We particularly have to communicate potential side effects of targeted therapies and immunotherapy so that local doctors can recognize early. #lcsm
#LCSM Chat @lcsmchat
RT @lgreco_ny: @JFreemanDaily @AlaskaAir This time last year we attempted to drive home in a blizzard (that snow bomb event.) We didn't get far before we had to find a hotel. #lcsm Good times!
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @findlungcancer: T4 collaborations and affiliations between community & high volume with rotations of key clinicians - identifying centers of excellence for imaging & labs & biopsies at community locations with over read by high volume centers #lcsm
#LCSM Chat @lcsmchat
RT @SteligaMD: T3: T3: One thing we do at @uamscancer is have a nurse navigator who contacts the patient and family before visit. She is a point of contact for them; they have her contact and she guided them each step. Our RN navigator is a star! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @SteligaMD: T3: T3: One thing we do at @uamscancer is have a nurse navigator who contacts the patient and family before visit. She is a point of contact for them; they have her contact and she guided them each step. Our RN navigator is a star! #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T4 collaborations and affiliations between community & high volume with rotations of key clinicians - identifying centers of excellence for imaging & labs & biopsies at community locations with over read by high volume centers #lcsm
Brendon Stiles @BrendonStilesMD
T4. Cancer centers shouldn’t be black holes, sucking everything in and not letting anything (or information) back out. #lcsm https://t.co/jLUlFIRojC
Aparna Hegde, MD @notahedge
Just what we need. Be creative #lcsm
Laura Greco @lgreco_ny
Yes! Some doctors are better than other in coordinating with each other. #lcsm
Don Stranathan @don450sl
@BrendonStilesMD @lcsmchat T4 I feel ALCF is making progress with their Centers of Excellence #LCSM
Dr. David Tom Cooke @DavidCookeMD
RT @BrendonStilesMD: T4. Cancer centers shouldn’t be black holes, sucking everything in and not letting anything (or information) back out. #lcsm https://t.co/jLUlFIRojC
Brendon Stiles @BrendonStilesMD
T4. Appropriate and nuanced cancer care can be given in communities, particularly when in communication with centers of excellence. #lcsm
Vamsi Velcheti, MD @VamsiVelcheti
@findlungcancer They key is to have good and timely communication between oncologists to help guide care #LCSM
Brendon Stiles @BrendonStilesMD
@lgreco_ny If it makes you feel any better, I too get pissed when doctors don't call me about my patients. #lcsm
Andrea Borondy Kitts @findlungcancer
T4 good point - and also share available treatments & clinical trials across centers and find way to provide access at community site for people who cant travel #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. Cancer centers shouldn’t be black holes, sucking everything in and not letting anything (or information) back out. #lcsm https://t.co/jLUlFIRojC
#LCSM Chat @lcsmchat
RT @notahedge: Just what we need. Be creative #lcsm
#LCSM Chat @lcsmchat
RT @lgreco_ny: Yes! Some doctors are better than other in coordinating with each other. #lcsm
#LCSM Chat @lcsmchat
RT @don450sl: @BrendonStilesMD @lcsmchat T4 I feel ALCF is making progress with their Centers of Excellence #LCSM
Brendon Stiles @BrendonStilesMD
T4. Many hospitals are joining networks anchored by large academic centers. Provides great opportunity for continued education, virtual tumor boards, pathology reviews, etc. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. Appropriate and nuanced cancer care can be given in communities, particularly when in communication with centers of excellence. #lcsm
#LCSM Chat @lcsmchat
RT @VamsiVelcheti: @findlungcancer They key is to have good and timely communication between oncologists to help guide care #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @lgreco_ny If it makes you feel any better, I too get pissed when doctors don't call me about my patients. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T4 good point - and also share available treatments & clinical trials across centers and find way to provide access at community site for people who cant travel #lcsm
Janet Freeman-Daily @JFreemanDaily
@plh4lisa @BrendonStilesMD Flying from sea level to a mile high takes a few days of adjustment! #lcsm
Lung Cancer Sux @LungCancerSux
RT @BrendonStilesMD: T2. The wrap up. #lcsm https://t.co/FK554NAdMQ
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. Many hospitals are joining networks anchored by large academic centers. Provides great opportunity for continued education, virtual tumor boards, pathology reviews, etc. #lcsm
Lisa Moran @plh4lisa
T4: it would be better to have each facility on the same data sharing system to be able to view all scans and tests. #lcsm
Andrea Borondy Kitts @findlungcancer
T4 it would help if we had better interoperability with our medical record systems #lcsm
Brendon Stiles @BrendonStilesMD
T5. Are there resources that exist to help patients educate themselves, get second opinions, or even facilitate travel for cancer care? #lcsm
Dr. David Tom Cooke @DavidCookeMD
A4 @UCDavisHealth and one of our community partners @MarshallMedical is connected via EHR. Makes communication and imaging review very simple. Especially for complex #LungCancer care. #LCSM
Danielle Pardue @Actorielle
T3: I hate to say this because it sounds awful, but there's a bit of useful gamesmanship in purposefully becoming friends with every person you meet when coming to a new hospital for treatment. #lcsm
Brendon Stiles @BrendonStilesMD
T5. Certainly lots of great websites for patients. Which are your favorites? #lcsm
#LCSM Chat @lcsmchat
RT @plh4lisa: T4: T4: it would be better to have each facility on the same data sharing system to be able to view all scans and tests. #lcsm
Laura Greco @lgreco_ny
@BrendonStilesMD I also think if you are going to stay local but consult with another doc that as a patient, you need to be a very active and engaged participant in your care. There is just more potential for errors. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T4 it would help if we had better interoperability with our medical record systems #lcsm
Lung Cancer #1 cancer killer of women @VirginiaMByrne
#lcsm I thought that being at an academic center would lead to better symptom/side effects MGMT., But I haven't found that at MSK.
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T5. Are there resources that exist to help patients educate themselves, get second opinions, or even facilitate travel for cancer care? #lcsm
Andrea Borondy Kitts @findlungcancer
consider writing up case studies with best practices specifically for #lungcancer care #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A4 @UCDavisHealth and one of our community partners @MarshallMedical is connected via EHR. Makes communication and imaging review very simple. Especially for complex #LungCancer care. #LCSM
Lung Cancer Sux @LungCancerSux
Very lucky to have best neuro oncologist and neurosurgeon in my back yard #lcsm
Brendon Stiles @BrendonStilesMD
T5. I love the proliferation of patient groups like @EGFRResisters @ALKLungCancer @ROS1cancer. The ability of members to share info w/ new patients is critical. #lcsm
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD Some oncologists will do remote second opinions over the phone (not covered by insurance in the US). #LCSM
Matthew Steliga MD FACS @SteligaMD
T4. Communication. Communication. Both ways- referring community needs to be able to get in touch w regional center MDs easily, & those referral centers need to get records, plans, & results back to referring docs. #LCSM
#LCSM Chat @lcsmchat
RT @Actorielle: T3: T3: I hate to say this because it sounds awful, but there's a bit of useful gamesmanship in purposefully becoming friends with every person you meet when coming to a new hospital for treatment. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T5. Certainly lots of great websites for patients. Which are your favorites? #lcsm
KC Dill @kasedill
RT @Actorielle: T3: T3: I hate to say this because it sounds awful, but there's a bit of useful gamesmanship in purposefully becoming friends with every person you meet when coming to a new hospital for treatment. #lcsm
#LCSM Chat @lcsmchat
RT @lgreco_ny: @BrendonStilesMD I also think if you are going to stay local but consult with another doc that as a patient, you need to be a very active and engaged participant in your care. There is just more potential for errors. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T5. Certainly lots of great websites for patients. Which are your favorites? #lcsm
#LCSM Chat @lcsmchat
RT @VirginiaMByrne: #lcsm I thought that being at an academic center would lead to better symptom/side effects MGMT., But I haven't found that at MSK.
Andrea Borondy Kitts @findlungcancer
RT @DavidCookeMD: A4 @UCDavisHealth and one of our community partners @MarshallMedical is connected via EHR. Makes communication and imaging review very simple. Especially for complex #LungCancer care. #LCSM
#LCSM Chat @lcsmchat
RT @findlungcancer: consider writing up case studies with best practices specifically for #lungcancer care #lcsm
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T5. Are there resources that exist to help patients educate themselves, get second opinions, or even facilitate travel for cancer care? #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T5. Are there resources that exist to help patients educate themselves, get second opinions, or even facilitate travel for cancer care? #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerSux: Very lucky to have best neuro oncologist and neurosurgeon in my back yard #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T5. I love the proliferation of patient groups like @EGFRResisters @ALKLungCancer @ROS1cancer. The ability of members to share info w/ new patients is critical. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @BrendonStilesMD Some oncologists will do remote second opinions over the phone (not covered by insurance in the US). #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @BrendonStilesMD: T4. Many hospitals are joining networks anchored by large academic centers. Provides great opportunity for continued education, virtual tumor boards, pathology reviews, etc. #lcsm
#LCSM Chat @lcsmchat
RT @SteligaMD: T4. Communication. Communication. Both ways- referring community needs to be able to get in touch w regional center MDs easily, & those referral centers need to get records, plans, & results back to referring docs. #LCSM
Brendon Stiles @BrendonStilesMD
T5. Telemedicine is also ramping up in many places. May provide good avenue for second opinions. #lcsm https://t.co/iDu8Hu4fed
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T5. I love the proliferation of patient groups like @EGFRResisters @ALKLungCancer @ROS1cancer. The ability of members to share info w/ new patients is critical. #lcsm
Dr. David Tom Cooke @DavidCookeMD
A5 https://t.co/fse3ihfj2U of course! #LCSM
Andrea Borondy Kitts @findlungcancer
RT @SteligaMD: T4. Communication. Communication. Both ways- referring community needs to be able to get in touch w regional center MDs easily, & those referral centers need to get records, plans, & results back to referring docs. #LCSM
Danielle Pardue @Actorielle
RT @JFreemanDaily: @BrendonStilesMD Some oncologists will do remote second opinions over the phone (not covered by insurance in the US). #LCSM
Aparna Hegde, MD @notahedge
These need to be true partnerships. Some are just in name/financial. Very important to check with your physician if this is your expectation #lcsm
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T5. Telemedicine is also ramping up in many places. May provide good avenue for second opinions. #lcsm https://t.co/iDu8Hu4fed
Stephen V Liu, MD @StephenVLiu
@BrendonStilesMD T5: some trials, particularly for rare genomic subsets, will often help arrange or reimburse travel to the nearest clinical site. Contact information for each trial would be on https://t.co/XuAni5RDnV #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T5. Telemedicine is also ramping up in many places. May provide good avenue for second opinions. #lcsm https://t.co/iDu8Hu4fed
Dr. David Tom Cooke @DavidCookeMD
RT @findlungcancer: consider writing up case studies with best practices specifically for #lungcancer care #lcsm
Janet Freeman-Daily @JFreemanDaily
T5: National Comprehensive Cancer Network members are good options for second opinions. https://t.co/pcVWZdK1qg #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A5 https://t.co/fse3ihfj2U of course! #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
#Telemedicine #Telehealth #PatientsFirst #lcsm
Brendon Stiles @BrendonStilesMD
RT @StephenVLiu: @BrendonStilesMD T5: @BrendonStilesMD T5: some trials, particularly for rare genomic subsets, will often help arrange or reimburse travel to the nearest clinical site. Contact information for each trial would be on https://t.co/XuAni5RDnV #LCSM
Biniam Kidane @biniamkidaneMD
RT @SteligaMD: T4. Communication. Communication. Both ways- referring community needs to be able to get in touch w regional center MDs easily, & those referral centers need to get records, plans, & results back to referring docs. #LCSM
Dr. Jan Marie Eberth @jmeberth
@BrendonStilesMD I think they have something like this already in KY through the Markey Cancer Center (has many affiliates across the state). #LCSM
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
RT @BrendonStilesMD: T1. Great article from the group at Yale: T1. Great article from the group at Yale: https://t.co/gm0F5Y11nq #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
#lcsm FTW
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: T5. Telemedicine is also ramping up in many places. May provide good avenue for second opinions. #lcsm https://t.co/iDu8Hu4fed
Aparna Hegde, MD @notahedge
RT @BrendonStilesMD: T4. How can we best coordinate care between community and high volume regional centers? #lcsm
Danielle Pardue @Actorielle
RT @StephenVLiu: @BrendonStilesMD T5: @BrendonStilesMD T5: some trials, particularly for rare genomic subsets, will often help arrange or reimburse travel to the nearest clinical site. Contact information for each trial would be on https://t.co/XuAni5RDnV #LCSM
Danielle Pardue @Actorielle
RT @JFreemanDaily: T5: T5: National Comprehensive Cancer Network members are good options for second opinions. https://t.co/pcVWZdK1qg #LCSM
Andrea Borondy Kitts @findlungcancer
RT @TimAllenMDJD: #Telemedicine #Telehealth #PatientsFirst #lcsm
Biniam Kidane @biniamkidaneMD
t4: navigators help. Communication is key. #lcsm
Brendon Stiles @BrendonStilesMD
T5. Here is our site from @WeillCornell @nyphospital #lcsm https://t.co/KSVLTw7xFP
Janet Freeman-Daily @JFreemanDaily
T5: The major #lungcancer advocacy organizations can assist in finding clinical trials--some even have clinical trial finder software on their websites. #LCSM
Brendon Stiles @BrendonStilesMD
T5. I have also been impressed with this information rich website for cancer patients (w/ disclosure that I have met with team for @lcrf_org): https://t.co/DtDc6oIWLN #lcsm
Anita Figueras @scifiknitter
T4 As with so many things, it's all relationships. If you are going to have both local and distant doctors, you gotta pick ones who are willing to collaborate. Bonus: doctors willing to talk with each other are more likely to talk with you! #lcsm
#LCSM Chat @lcsmchat
RT @notahedge: These need to be true partnerships. Some are just in name/financial. Very important to check with your physician if this is your expectation #lcsm
Dr. Jan Marie Eberth @jmeberth
@findlungcancer It always amazes me that all the EHR systems cannot “talk” to one another given the high level of tech that exists in other sectors. #LCSM
Vamsi Velcheti, MD @VamsiVelcheti
@BrendonStilesMD It is sometimes hard though... especially if the community oncologists are not in the same system/EMR #LCSM
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
RT @BrendonStilesMD: T1. Curiously, they put “cure” in the supplemental data. Seems important. #lcsm https://t.co/xtMuBYqt6N
Dr. David Tom Cooke @DavidCookeMD
A5 Epic offers video clinic functionality as part of “MyChart” though often not covered by insurance. #LCSM
#LCSM Chat @lcsmchat
RT @StephenVLiu: @BrendonStilesMD T5: @BrendonStilesMD T5: some trials, particularly for rare genomic subsets, will often help arrange or reimburse travel to the nearest clinical site. Contact information for each trial would be on https://t.co/XuAni5RDnV #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T5: T5: National Comprehensive Cancer Network members are good options for second opinions. https://t.co/pcVWZdK1qg #LCSM
Danielle Pardue @Actorielle
RT @JFreemanDaily: T5: T5: The major #lungcancer advocacy organizations can assist in finding clinical trials--some even have clinical trial finder software on their websites. #LCSM
Brendon Stiles @BrendonStilesMD
@SteligaMD Totally agree. #lcsm
#LCSM Chat @lcsmchat
RT @jmeberth: @BrendonStilesMD I think they have something like this already in KY through the Markey Cancer Center (has many affiliates across the state). #LCSM
#LCSM Chat @lcsmchat
RT @biniamkidaneMD: t4: t4: navigators help. Communication is key. #lcsm
KC Dill @kasedill
T5 cam is where I truly connect and have my questions answered. The personal and professional collaboration and knowledge is amazing and very appreciated.#lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T5. Here is our site from @WeillCornell @nyphospital #lcsm https://t.co/KSVLTw7xFP
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T5: T5: The major #lungcancer advocacy organizations can assist in finding clinical trials--some even have clinical trial finder software on their websites. #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T5. I have also been impressed with this information rich website for cancer patients (w/ disclosure that I have met with team for @lcrf_org): https://t.co/DtDc6oIWLN #lcsm
Andrea Borondy Kitts @findlungcancer
T5 I find twitter #lcsm to be best site overall for getting latest info, support and questions answered
#LCSM Chat @lcsmchat
RT @scifiknitter: T4 As with so many things, it's all relationships. If you are going to have both local and distant doctors, you gotta pick ones who are willing to collaborate. Bonus: doctors willing to talk with each other are more likely to talk with you! #lcsm
Janet Freeman-Daily @JFreemanDaily
T5: The oncogene-focused patient groups and #lungcancer online communities can sometimes help patients identify good clinical trial options. #LCSM
#LCSM Chat @lcsmchat
RT @jmeberth: @findlungcancer It always amazes me that all the EHR systems cannot “talk” to one another given the high level of tech that exists in other sectors. #LCSM
#LCSM Chat @lcsmchat
RT @VamsiVelcheti: @BrendonStilesMD It is sometimes hard though... especially if the community oncologists are not in the same system/EMR #LCSM
Laura Greco @lgreco_ny
Caring Ambassadors has a great newsletter with developments. #lcsm
Lisa Moran @plh4lisa
@BrendonStilesMD T5: my best resources are other patients, @EGFRResisters @lcsmchat and @TheALCF Living rooms. I know @AmericanCancer has a travel program. #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A5 Epic offers video clinic functionality as part of “MyChart” though often not covered by insurance. #LCSM
Brendon Stiles @BrendonStilesMD
@VamsiVelcheti Super hard. We haven't reached the potential that was expected of EMRs. #lcsm
Biniam Kidane @biniamkidaneMD
T5: #telehealth is a critical component of delivering care in our regionalized system @ThoracicsCanada #LCSM
#LCSM Chat @lcsmchat
RT @kasedill: T5 cam is where I truly connect and have my questions answered. The personal and professional collaboration and knowledge is amazing and very appreciated.#lcsm
Aparna Hegde, MD @notahedge
@BrendonStilesMD We need an EHR that's as user friendly as Twitter or Facebook. Legacy systems need to be phased out. But who's gonna do it? Does anyone know about new developments in this area? #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T5 I find twitter #lcsm to be best site overall for getting latest info, support and questions answered
Angela Criswell @CriswellAngela
@findlungcancer In rural KY, lack of reliable transportation is a real barrier. An hour away may as well be 10, when it comes to the difficulty of keeping regular medical appointments. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T5: T5: The oncogene-focused patient groups and #lungcancer online communities can sometimes help patients identify good clinical trial options. #LCSM
#LCSM Chat @lcsmchat
RT @lgreco_ny: Caring Ambassadors has a great newsletter with developments. #lcsm
Brendon Stiles @BrendonStilesMD
@jmeberth @findlungcancer Sometimes I can't even get mine to "talk" to me! #lcsm
Anita Figueras @scifiknitter
RT @JFreemanDaily: T5: T5: National Comprehensive Cancer Network members are good options for second opinions. https://t.co/pcVWZdK1qg #LCSM
KC Dill @kasedill
RT @BrendonStilesMD: T5. I have also been impressed with this information rich website for cancer patients (w/ disclosure that I have met with team for @lcrf_org): https://t.co/DtDc6oIWLN #lcsm
#LCSM Chat @lcsmchat
RT @plh4lisa: @BrendonStilesMD T5: @BrendonStilesMD T5: my best resources are other patients, @EGFRResisters @lcsmchat and @TheALCF Living rooms. I know @AmericanCancer has a travel program. #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @VamsiVelcheti Super hard. We haven't reached the potential that was expected of EMRs. #lcsm
#LCSM Chat @lcsmchat
RT @biniamkidaneMD: T5: T5: #telehealth is a critical component of delivering care in our regionalized system @ThoracicsCanada #LCSM
Danielle Pardue @Actorielle
RT @JFreemanDaily: T5: T5: The oncogene-focused patient groups and #lungcancer online communities can sometimes help patients identify good clinical trial options. #LCSM
KC Dill @kasedill
@BrendonStilesMD @lcrf_org Bookmarking #lcsm
Brendon Stiles @BrendonStilesMD
@findlungcancer You better believe it! #lcsm
Danielle Pardue @Actorielle
RT @notahedge: @BrendonStilesMD We need an EHR that's as user friendly as Twitter or Facebook. Legacy systems need to be phased out. But who's gonna do it? Does anyone know about new developments in this area? #lcsm
Janet Freeman-Daily @JFreemanDaily
T5: American Cancer Society offers free housing and transportation to cancers patients. Also, check out Nancy's List online for financial resources to help with travel. #LCSM
Biniam Kidane @biniamkidaneMD
RT @findlungcancer: T5 I find twitter #lcsm to be best site overall for getting latest info, support and questions answered
Dr. Jan Marie Eberth @jmeberth
@BrendonStilesMD I know the @AmericanCancer Society has a great hotline to connect people with local resources including travel assistance. #LCSM
Brendon Stiles @BrendonStilesMD
Almost time to wind the chat down. This has been an incredible discussion. #lcsm
Anita Figueras @scifiknitter
RT @jmeberth: @findlungcancer It always amazes me that all the EHR systems cannot “talk” to one another given the high level of tech that exists in other sectors. #LCSM
Aparna Hegde, MD @notahedge
RT @JFreemanDaily: T5: T5: American Cancer Society offers free housing and transportation to cancers patients. Also, check out Nancy's List online for financial resources to help with travel. #LCSM
Brendon Stiles @BrendonStilesMD
@CriswellAngela @findlungcancer That is painful and a real problem. #lcsm
Aparna Hegde, MD @notahedge
RT @jmeberth: @BrendonStilesMD I know the @AmericanCancer Society has a great hotline to connect people with local resources including travel assistance. #LCSM
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
@findlungcancer Traveling can be challenging, juggling responsibilities of careers, logistics of child care, transportation, arranging elder care of perhaps aging parents. Carepartners may not be able to attend all travel. There’s fatigue & toll on mental health too #lcsm
Andrea Borondy Kitts @findlungcancer
Healthcare is in the stone ages compared to others - only now are medical societies identifying skills and domains to train physicians on providing digital/virtual care #LCSm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @jmeberth: @BrendonStilesMD I know the @AmericanCancer Society has a great hotline to connect people with local resources including travel assistance. #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: T5: T5: American Cancer Society offers free housing and transportation to cancers patients. Also, check out Nancy's List online for financial resources to help with travel. #LCSM
#LCSM Chat @lcsmchat
RT @CriswellAngela: @findlungcancer In rural KY, lack of reliable transportation is a real barrier. An hour away may as well be 10, when it comes to the difficulty of keeping regular medical appointments. #lcsm
Brendon Stiles @BrendonStilesMD
@biniamkidaneMD @ThoracicsCanada Where have you been? We need some Canadian expertise! #lcsm
#LCSM Chat @lcsmchat
RT @notahedge: @BrendonStilesMD We need an EHR that's as user friendly as Twitter or Facebook. Legacy systems need to be phased out. But who's gonna do it? Does anyone know about new developments in this area? #lcsm
Janet Freeman-Daily @JFreemanDaily
@notahedge @BrendonStilesMD I was just at a conference today at the National Institute of Medicine talking about data sharing, EHRs, etc. Have you checked out Open Notes? #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @biniamkidaneMD: T5: T5: #telehealth is a critical component of delivering care in our regionalized system @ThoracicsCanada #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @plh4lisa: @BrendonStilesMD T5: @BrendonStilesMD T5: my best resources are other patients, @EGFRResisters @lcsmchat and @TheALCF Living rooms. I know @AmericanCancer has a travel program. #LCSM
Don Stranathan @don450sl
@lcsmchat T5 I am hearing good feedback on Massive Bio on free clinical matching and 2nd opinions for a fee. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T5: T5: American Cancer Society offers free housing and transportation to cancers patients. Also, check out Nancy's List online for financial resources to help with travel. #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: T5: T5: The oncogene-focused patient groups and #lungcancer online communities can sometimes help patients identify good clinical trial options. #LCSM
Dr. David Tom Cooke @DavidCookeMD
A5 what’s new with @lyft and @Uber with help with clinic visits? #LCSM
#LCSM Chat @lcsmchat
RT @jmeberth: @BrendonStilesMD I know the @AmericanCancer Society has a great hotline to connect people with local resources including travel assistance. #LCSM
Danielle Pardue @Actorielle
RT @GraceCordovano: @findlungcancer Traveling can be challenging, juggling responsibilities of careers, logistics of child care, transportation, arranging elder care of perhaps aging parents. Carepartners may not be able to attend all travel. There’s fatigue & toll on mental health too #lcsm
Andrea Borondy Kitts @findlungcancer
Time for Ubercare #lcsm
Brendon Stiles @BrendonStilesMD
Doctors need patients and advocates to constructively share their stories and experiences. That is how we learn from you. So share stories about traveling with your treatment team, good or bad. #lcsm
David Hill @maddog1066
@findlungcancer However an archive site that is easy to access for less sophisticated patients who may not be on Twitter would be a great resource. #LCSM
#LCSM Chat @lcsmchat
RT @GraceCordovano: @findlungcancer Traveling can be challenging, juggling responsibilities of careers, logistics of child care, transportation, arranging elder care of perhaps aging parents. Carepartners may not be able to attend all travel. There’s fatigue & toll on mental health too #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: Healthcare is in the stone ages compared to others - only now are medical societies identifying skills and domains to train physicians on providing digital/virtual care #LCSm
Aparna Hegde, MD @notahedge
T5 please ask to meet a social worker. Also ask the study coordinators if the trial reimburses your expenses #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @notahedge @BrendonStilesMD I was just at a conference today at the National Institute of Medicine talking about data sharing, EHRs, etc. Have you checked out Open Notes? #lcsm
#LCSM Chat @lcsmchat
RT @don450sl: @lcsmchat T5 I am hearing good feedback on Massive Bio on free clinical matching and 2nd opinions for a fee. #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A5 what’s new with @lyft and @Uber with help with clinic visits? #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
#DigitalPathology #lcsm
Brendon Stiles @BrendonStilesMD
Please share your closing thoughts! #lcsm
Biniam Kidane @biniamkidaneMD
@CriswellAngela @findlungcancer We have similar issues in remote northern communities. Our #telehealth system combined with intermittent organized transport has really helped to improve access and care @ThoracicsCanada @umanitoba @hsc_winnipeg #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Doctors need patients and advocates to constructively share their stories and experiences. That is how we learn from you. So share stories about traveling with your treatment team, good or bad. #lcsm
#LCSM Chat @lcsmchat
RT @maddog1066: @findlungcancer However an archive site that is easy to access for less sophisticated patients who may not be on Twitter would be a great resource. #LCSM
#LCSM Chat @lcsmchat
RT @notahedge: T5 please ask to meet a social worker. Also ask the study coordinators if the trial reimburses your expenses #lcsm
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: Doctors need patients and advocates to constructively share their stories and experiences. That is how we learn from you. So share stories about traveling with your treatment team, good or bad. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Please share your closing thoughts! #lcsm
#LCSM Chat @lcsmchat
RT @biniamkidaneMD: @CriswellAngela @findlungcancer We have similar issues in remote northern communities. Our #telehealth system combined with intermittent organized transport has really helped to improve access and care @ThoracicsCanada @umanitoba @hsc_winnipeg #LCSM
Brendon Stiles @BrendonStilesMD
My take away – lung cancer is almost always worth a second opinion. Feel things out, get options, and make an educated decision. Go where you are comfortable and confident. #lcsm
Andrea Borondy Kitts @findlungcancer
RT @biniamkidaneMD: @CriswellAngela @findlungcancer We have similar issues in remote northern communities. Our #telehealth system combined with intermittent organized transport has really helped to improve access and care @ThoracicsCanada @umanitoba @hsc_winnipeg #LCSM
Danielle Pardue @Actorielle
RT @BrendonStilesMD: My take away – lung cancer is almost always worth a second opinion. Feel things out, get options, and make an educated decision. Go where you are comfortable and confident. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
It has been a privilege to participate. #lcsm
Dr. David Tom Cooke @DavidCookeMD
Simulation night for our residency program so missed the chat, but I look forward to the transcript! #meded #lcsm
Brendon Stiles @BrendonStilesMD
I believe in a “volume-outcome” effect. In surgery, oncology, radiation oncology, pathology. Everything! But I also believe that it shouldn’t come at the expense of personalized care and respect for patients as people. #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @BrendonStilesMD: My take away – lung cancer is almost always worth a second opinion. Feel things out, get options, and make an educated decision. Go where you are comfortable and confident. #lcsm
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
@BrendonStilesMD @plh4lisa @CUCancerCenter Many considerations here. Will leaving early & often be frowned upon at work? Make child care unaffordable? Accessibility by public transportation? Physical ability to endure a long round trip after a taxing day at the dr or infusion center? #lcsm
Biniam Kidane @biniamkidaneMD
RT @notahedge: T5 please ask to meet a social worker. Also ask the study coordinators if the trial reimburses your expenses #lcsm
Biniam Kidane @biniamkidaneMD
RT @TimAllenMDJD: #DigitalPathology #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: My take away – lung cancer is almost always worth a second opinion. Feel things out, get options, and make an educated decision. Go where you are comfortable and confident. #lcsm
Lisa Moran @plh4lisa
@DavidCookeMD @lyft @Uber For last couple montgs and through Feb I get a 30% @Uber discount to approved @uchealth buildings. #LCSM
Brendon Stiles @BrendonStilesMD
Thanks to all of the #lcsm community who joined. And thanks to all of our guests tonight. Great discussion on an important topic! #lcsm
Aparna Hegde, MD @notahedge
RT @biniamkidaneMD: @CriswellAngela @findlungcancer We have similar issues in remote northern communities. Our #telehealth system combined with intermittent organized transport has really helped to improve access and care @ThoracicsCanada @umanitoba @hsc_winnipeg #LCSM
Danielle Pardue @Actorielle
Thank you, my friends #lcsm
Brendon Stiles @BrendonStilesMD
RT @JFreemanDaily: T5: T5: American Cancer Society offers free housing and transportation to cancers patients. Also, check out Nancy's List online for financial resources to help with travel. #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: I believe in a “volume-outcome” effect. In surgery, oncology, radiation oncology, pathology. Everything! But I also believe that it shouldn’t come at the expense of personalized care and respect for patients as people. #lcsm
Vamsi Velcheti, MD @VamsiVelcheti
@StephenVLiu @BrendonStilesMD T5 One of the big challenges for patients now is finding the trial- getting increasingly hard now- too many choices and hard to pick one over the other- #lcsm
Anita Figueras @scifiknitter
I've been thinking that Canada probably has a lot to share with regionalization efforts, #lcsm
#LCSM Chat @lcsmchat
RT @GraceCordovano: @BrendonStilesMD @plh4lisa @CUCancerCenter Many considerations here. Will leaving early & often be frowned upon at work? Make child care unaffordable? Accessibility by public transportation? Physical ability to endure a long round trip after a taxing day at the dr or infusion center? #lcsm
#LCSM Chat @lcsmchat
RT @plh4lisa: @DavidCookeMD @lyft @Uber For last couple montgs and through Feb I get a 30% @Uber discount to approved @uchealth buildings. #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Thanks to all of the #lcsm community who joined. And thanks to all of our guests tonight. Great discussion on an important topic! #lcsm
Andrea Borondy Kitts @findlungcancer
CT Developing protocols for expert care in community settings key to provide access - technology (AI, interoperability, telehealth), clinical specialty rotations, collaborations, virtual tumor boards will all help but need all stakeholders to buy in and support the vision #LCSM
Dr. David Tom Cooke @DavidCookeMD
RT @plh4lisa: @DavidCookeMD @lyft @Uber For last couple montgs and through Feb I get a 30% @Uber discount to approved @uchealth buildings. #LCSM
Janet Freeman-Daily @JFreemanDaily
Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of surgery, bronchoscopy, genomic testing, etc. Even if you love your current doc--if he truly cares about patients, he'll understand. It's YOUR life. #LCSM
KC Dill @kasedill
Happy to know that academic centers are sharing their treatment strategies with regional centers. Patients are becoming better informed by chats such as this. Thanks for the informative chat as always! #lcsm
Brendon Stiles @BrendonStilesMD
@DavidCookeMD Should have simulated a twitter chat. Might be more useful! #MaybeNextTime #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of surgery, bronchoscopy, genomic testing, etc. Even if you love your current doc--if he truly cares about patients, he'll understand. It's YOUR life. #LCSM
Andrea Borondy Kitts @findlungcancer
great job moderating Brendon Thank you #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of surgery, bronchoscopy, genomic testing, etc. Even if you love your current doc--if he truly cares about patients, he'll understand. It's YOUR life. #LCSM
#LCSM Chat @lcsmchat
Thank you @BrendonStilesMD for moderating this evening. Always a pleasure! #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @findlungcancer: CT Developing protocols for expert care in community settings key to provide access - technology (AI, interoperability, telehealth), clinical specialty rotations, collaborations, virtual tumor boards will all help but need all stakeholders to buy in and support the vision #LCSM
Dr. David Tom Cooke @DavidCookeMD
#LCSM
#LCSM Chat @lcsmchat
RT @VamsiVelcheti: @StephenVLiu @BrendonStilesMD T5 One of the big challenges for patients now is finding the trial- getting increasingly hard now- too many choices and hard to pick one over the other- #lcsm
Brendon Stiles @BrendonStilesMD
@TimAllenMDJD Thanks as always Tim! #lcsm
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
@JFreemanDaily @BrendonStilesMD @plh4lisa @CUCancerCenter Janet, if you could, would you opt for telemedicine consults when appropriate? #lcsm
#LCSM Chat @lcsmchat
RT @scifiknitter: I've been thinking that Canada probably has a lot to share with regionalization efforts, #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @VamsiVelcheti: @StephenVLiu @BrendonStilesMD T5 One of the big challenges for patients now is finding the trial- getting increasingly hard now- too many choices and hard to pick one over the other- #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: CT Developing protocols for expert care in community settings key to provide access - technology (AI, interoperability, telehealth), clinical specialty rotations, collaborations, virtual tumor boards will all help but need all stakeholders to buy in and support the vision #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of surgery, bronchoscopy, genomic testing, etc. Even if you love your current doc--if he truly cares about patients, he'll understand. It's YOUR life. #LCSM
Janet Freeman-Daily @JFreemanDaily
Thanks @BrendonStilesMD for great #LCSM Chat topic and moderation--you are always well prepared and informative!
#LCSM Chat @lcsmchat
RT @kasedill: Happy to know that academic centers are sharing their treatment strategies with regional centers. Patients are becoming better informed by chats such as this. Thanks for the informative chat as always! #lcsm
Brendon Stiles @BrendonStilesMD
@biniamkidaneMD @CriswellAngela @findlungcancer @ThoracicsCanada @umanitoba @hsc_winnipeg Dogsleds? #lcsm
Andrea Borondy Kitts @findlungcancer
RT @scifiknitter: I've been thinking that Canada probably has a lot to share with regionalization efforts, #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Thank you for hosting, @BrendonStilesMD #lcsm
Biniam Kidane @biniamkidaneMD
We certainly believe in this in Canada @ThoracicsCanada Our systems are structured to achieve the best care for all patients. Sometimes, there are distance issues but there have been many solutions to these including #Telehealth & nurse navigation #LCSM
Lung Cancer #1 cancer killer of women @VirginiaMByrne
@RedGia I have a wonderful book called "Living With Cance" by 2 docs at @MGHCC, where you join palliative care because with both you can live longer. I was psyched! I took it to my doc & requested a palliative care doc. Onc told me I see too many docs already. WTF? #LCSM
Don Stranathan @don450sl
@BrendonStilesMD @lcsmchat T5 “Knowledge is Power” #LCSM
Brendon Stiles @BrendonStilesMD
Thanks to everyone for participating! #lcsm
Janet Freeman-Daily @JFreemanDaily
@GraceCordovano @BrendonStilesMD @plh4lisa @CUCancerCenter Sure, unless I'm having trouble with something that would benefit from a physical exam. #lcsm
Lisa Moran @plh4lisa
@BrendonStilesMD Thank you @BrendonStilesMD Se you next chat. #lcsm
#LCSM Chat @lcsmchat
RT @biniamkidaneMD: We certainly believe in this in Canada @ThoracicsCanada Our systems are structured to achieve the best care for all patients. Sometimes, there are distance issues but there have been many solutions to these including #Telehealth & nurse navigation #LCSM
#LCSM Chat @lcsmchat
RT @VirginiaMByrne: @RedGia I have a wonderful book called "Living With Cance" by 2 docs at @MGHCC, where you join palliative care because with both you can live longer. I was psyched! I took it to my doc & requested a palliative care doc. Onc told me I see too many docs already. WTF? #LCSM
KC Dill @kasedill
@JFreemanDaily Absolutely agree!! You are the best advocate for yourself and your treatment plan. Knowledge is power #lcsm
Biniam Kidane @biniamkidaneMD
RT @lcsmchat: Thank you @BrendonStilesMD for moderating this evening. Always a pleasure! #LCSM
Biniam Kidane @biniamkidaneMD
RT @findlungcancer: great job moderating Brendon Thank you #lcsm
Brendon Stiles @BrendonStilesMD
@JFreemanDaily Thank you as always for driving the conversation and for making incredibly important points! #lcsm
Biniam Kidane @biniamkidaneMD
RT @JFreemanDaily: Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of surgery, bronchoscopy, genomic testing, etc. Even if you love your current doc--if he truly cares about patients, he'll understand. It's YOUR life. #LCSM
#LCSM Chat @lcsmchat
RT @kasedill: @JFreemanDaily Absolutely agree!! You are the best advocate for yourself and your treatment plan. Knowledge is power #lcsm
Andrea Borondy Kitts @findlungcancer
very short sited - were you able to insist and get a palliative care doc? #lcsm
Brendon Stiles @BrendonStilesMD
@JFreemanDaily But I have to admit it was a stressful affair without https://t.co/RK0CDZY557!!! #lcsm
Dr. David Tom Cooke @DavidCookeMD
>15% of our #LungCancer patients we see in our @UCDavisHealth Thoracic #Surgery clinic travel > 50 miles. Looking into video visits. #LCSM
Aparna Hegde, MD @notahedge
Google assistant on your phone, Google home in your home but same old epic at the hospital #lcsm
Brendon Stiles @BrendonStilesMD
@mdwinterwv I like to think we help make the rules rather than bend them! #lcsm
KC Dill @kasedill
Good night from Texas thank you to all moderators and participants. As always it’s been a pleasure. #lcsm.
Brendon Stiles @BrendonStilesMD
@plh4lisa Thanks for joining Lisa! #lcsm
Andrea Borondy Kitts @findlungcancer
RT @biniamkidaneMD: We certainly believe in this in Canada @ThoracicsCanada Our systems are structured to achieve the best care for all patients. Sometimes, there are distance issues but there have been many solutions to these including #Telehealth & nurse navigation #LCSM
Mark Winter @mdwinterwv
@BrendonStilesMD Agreed! Thank you! #LCSM
Anita Figueras @scifiknitter
@findlungcancer We don't even have much access to Uber in rural areas - population spread too thin. Up here you have to have a car, a friend, or qualify for a Social Services driver. #lcsm
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
@BrendonStilesMD @STS_CTsurgery Incredibly difficult for patients to make an educated decision about a specialist or center as we do not have access to volumes of patients diagnosed, treated by a dr or #of procedures done at a center/hospital. No safety stats, rates of misdiagnosis, medical errors info #LCSM
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD I'll have to get used to tweetdeck. But I like that it accommodates and displays longer tweets. #lcsm
Vamsi Velcheti, MD @VamsiVelcheti
Great job moderating as always @BrendonStilesMD #lcsm
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
RT @BrendonStilesMD: T2. In @STS_CTsurgery study, regionalization of lung cancer surgery led to: -more minimally invasive surgery -shorter hospital stays -less complications #lcsm
SunshineKK @SunshineKK68
RT @JFreemanDaily: Closing thoughts: Good #lungcancer care is worth time and trouble of second opinion at cancer center that does a lot of surgery, bronchoscopy, genomic testing, etc. Even if you love your current doc--if he truly cares about patients, he'll understand. It's YOUR life. #LCSM
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
RT @BrendonStilesMD: T2. I commented on it here: T2. I commented on it here: https://t.co/xPLA8iRvTR #lcsm Tough topic!
Aparna Hegde, MD @notahedge
So great to hear patient and other specialty perspectives. Thanks for putting together @BrendonStilesMD @lcsmchat @JFreemanDaily #lcsm
Biniam Kidane @biniamkidaneMD
Although “socialized medicine” may be a dirty phrase for our 🇺🇸 neighbours, a good regionalized system stems from that. There are different perspectives on this but my sense is that its hard to focus on delivering best care to all people when the primary driver is profit #LCSM
Aparna Hegde, MD @notahedge
I always encourage 2nd opinions. If you find something better, good for you. If they concur, still good for you. #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @BrendonStilesMD: @DavidCookeMD Should have simulated a twitter chat. Might be more useful! #MaybeNextTime #lcsm
Anita Figueras @scifiknitter
RT @biniamkidaneMD: Although “socialized medicine” may be a dirty phrase for our 🇺🇸 neighbours, a good regionalized system stems from that. There are different perspectives on this but my sense is that its hard to focus on delivering best care to all people when the primary driver is profit #LCSM
Janet Freeman-Daily @JFreemanDaily
Transcript for 07-Feb-2019 #LCSM Chat “Is it worth the drive?” is available at https://t.co/3OF96N27B9
Lung Cancer #1 cancer killer of women @VirginiaMByrne
I then researched MSKCC's palliative care & it wasn't life-affirming. I found a really good palliative caredoc at the new MD Anderson in Florham Park, NJ - and it's only 20 minutes away! #lcsm
sunshinedaydrmn @sunshinedaydrmn
RT @lgreco_ny: @ASCO Why isn't research for the metastatic patient a priority? We are literally dying for a cure and identifying responders isn't going to cut it when current treatments only last so long. #lcsm #bcsm @METUPorg #433aday
sunshinedaydrmn @sunshinedaydrmn
RT @METUPorg: When metastatic patient advocates come together we are going to get a lot more attention. We have been identifying responders in MBC for a couple of years now and masses still dying. We need metastatic research to be a priority @ASCO #lcsm #bcsm #metastaticBC
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
@BrendonStilesMD @DrewMoghanaki Striking & profound. Patients & their carepartners need access to this type of information in real-time when considering options during treatment planning. #lcsm
KC Dill @kasedill
@Actorielle Not to mention there is a special bond you share with others in similar situations. Lots of coping strategies and learning experiences. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: Transcript for 07-Feb-2019 #LCSM Chat “Is it worth the drive?” is available at https://t.co/3OF96N27B9
KC Dill @kasedill
RT @JFreemanDaily: T5: T5: The oncogene-focused patient groups and #lungcancer online communities can sometimes help patients identify good clinical trial options. #LCSM
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
@notahedge See many missed opportunities for cancer centers to meet patients where they are via social media. #lcsm
Janet Freeman-Daily @JFreemanDaily
Join us for our next #LCSM Chat on March 7, 2019 (we've changed to a once monthly schedule).
Christian Sinclair, MD, FAAHPM @ctsinclair
RT @JFreemanDaily: Join us for our next #LCSM Chat on March 7, 2019 (we've changed to a once monthly schedule).
Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano
@VamsiVelcheti @BrendonStilesMD Unfortunately, not in an easily accessible manner. For ex, if I look up a #medonc or #surgonc, their bio is not very helpful to me. I want data on volume of patients, procedures, diagnoses, sub-specialties, etc. Not at a patient's fingertips which is a barrier. #lcsm
Lung Cancer #1 cancer killer of women @VirginiaMByrne
@findlungcancer Here's another odd response: when I recently had to insist on getting a brain scan (it had been 10 months) onc said "If there's metastasis, what are you going to do about it?" #LCSM
Katherine OBrien @ihatebreastcanc
RT @JFreemanDaily: Join us for our next #LCSM Chat on March 7, 2019 (we've changed to a once monthly schedule).
#LCSM content from Twitter.