#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Welcome to #LCSM Chat! Our very special topic for April 1st: Tell Us What You Want- We’re Listening More info at https://t.co/QjJ9tq4wbx |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD I’m your moderator, Tim Allen (@timallenmdjd) Pulmonary pathologist. Professor and Chair of the Department of Pathology at the University of Mississippi Medical Center in Jackson, Mississippi #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD We'll get started in a few minutes -- please take a moment to introduce yourselves. #LCSM |
 | Janet Freeman-Daily @JFreemanDaily Good evening, Tim! Patient and research advocate Janet Freeman-Daily joining in lovely Seattle spring weather. #LCSM |
 | #LCSM Chat @lcsmchat RT @TimAllenMDJD: Welcome to #LCSM Chat! Our very special topic for April 1st: Welcome to #LCSM Chat! Our very special topic for April 1st: Tell Us What You Want- We’re Listening More info at https://t.co/QjJ9tq4wbx |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: I’m your moderator, Tim Allen (@timallenmdjd) Pulmonary pathologist. Professor and Chair of the Department of Pathology at the University of Mississippi Medical Center in Jackson, Mississippi #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: We'll get started in a few minutes -- please take a moment to introduce yourselves. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Big #LCSM welcome to our newest Chat moderator, @CharuAggarwalMD Glad to have you on board! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Howdy, @JFreemanDaily! #LCSM |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD @CharuAggarwalMD Yay! So happy to have you join our #LCSM Chat team, @CharuAggarwalMD! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/shziI4bmml |
 | Faces of Lung Cancer 🇺🇦 @LungCancerFaces Deana Hendrickson here. I’ll be tweeting from the @lcsmchat account tonight. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @TimAllenMDJD @CharuAggarwalMD Yay! So happy to have you join our #LCSM Chat team, @CharuAggarwalMD! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Howdy, @LungCancerFaces! #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Please remember to use #LCSM in all your tweets so others participating in the chat can see them. |
 | Lecia Sequist, MD, MPH @LeciaSequist Hi friends, Lecia Sequist medical oncologist @MGHThoracicOnc checking in for the chat tonight. Excited and open to hear what lung patients need and want! #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Big #LCSM welcome to our newest Chat moderator, @CharuAggarwalMD Glad to have you on board! |
 | Denise A Croix, PhD @CroixDenise Happy Thursday! #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Howdy, @LeciaSequist! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TimAllenMDJD @CharuAggarwalMD Yay! So happy to have you join our #LCSM Chat team, @CharuAggarwalMD! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience (but I urge you ahead and join in! It’s a great #LCSM team!) |
 | kristen kimball @KimballKristen #LCSM Hello everyone, it's Kris (kristen kimball) from Boston, former caregiver, always ally #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/shziI4bmml |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Please remember to use #LCSM in all your tweets so others participating in the chat can see them. |
 | Deb Smith 🌻 @debsmithbeach Hi, all. Deb here from raw, chilly, snowy (!!!!??) NH. Almost 10 years into this LC experience. #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @TimAllenMDJD: Big #LCSM welcome to our newest Chat moderator, @CharuAggarwalMD Glad to have you on board! |
| #LCSM Chat @lcsmchat @LeciaSequist @MGHThoracicOnc Hello! Glad you’re with us tonight. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Please do not promote products or services on the #LCSM feed or during the chat. Feel free to share vetted online resources. |
| #LCSM Chat @lcsmchat @CroixDenise Welcome! Thanks for joining us. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience (but I urge you ahead and join in! It’s a great #LCSM team!) |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD If you change someone’s words when you retweet, please label it MT (modified tweet). #LCSM |
| #LCSM Chat @lcsmchat @KimballKristen Hey Kris! #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Please do not promote products or services on the #LCSM feed or during the chat. Feel free to share vetted online resources. |
 | Elliot Servais, MD, FACS @ElliotServaisMD Elliot Servais - thoracic surgeon @LaheyHospital @bethisraellahey @TuftsMedSchool Looking forward to the open discussion and hearing what’s on the minds of the #LCSM community! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/9aLQyRZrmn) will not display tweets longer than 140. #LCSM |
| kristen kimball @KimballKristen @lcsmchat Hey, Deana! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Glad to see familiar Twitter handles as well as new participants tonight! #LCSM |
| #LCSM Chat @lcsmchat @ElliotServaisMD @LaheyHospital @bethisraellahey @TuftsMedSchool Welcome! Great to see you again. #lcsm |
 | Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian Hi friends, Rami Manochakian, thoracic medical oncologist @MayoCancerCare checking in for the #LCSM chat tonight. Looking forward to discussions that help our patients. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Note: Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/9aLQyRZrmn) will not display tweets longer than 140. #LCSM |
 | Sarika Jain @drjainsp RT @TimAllenMDJD: Glad to see familiar Twitter handles as well as new participants tonight! #LCSM |
| #LCSM Chat @lcsmchat @RManochakian @MayoCancerCare Glad you’re here. Welcome. #lcsm |
 | oncdoc @oncdoc7 #lcsm |
 | NCI Cancer Stats @NCICancerStats Did you know #LungCancer represented 12.7% of all new cancer cases in the US last year? Watch our ‘Did You Know?’ video to learn more about this cancer: https://t.co/tlMQwNB9xO #LCSM |
| #LCSM Chat @lcsmchat @oncdoc7 We see you! Welcome. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD In a little while, I will announce Three topics (T1, T2, T3). Please label your answers with T1, T2, or T3 to make transcript easier to follow. #LCSM |
 | Linnea Olson @1111linno #lcsm hej |
 | Bob Steele @steele_bob Good evening folks! Bob here in Greensboro, NC. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #LCSM Chat began almost 8 years ago! Many thanks to its two great founders and leaders, @JFreemanDaily & @LungCancerFaces |
| #LCSM Chat @lcsmchat @kboyd05 Welcome, Kathleen. I love Vancouver! Please make sure you include the #lcsm hashtag during the chat so everyone can see it. |
| #LCSM Chat @lcsmchat @wi_qiong @lgreco_ny @EdenLake @louisianagirl91 @LauraJBook @leahlphillips @LeciaSequist @PercyLeeMD @1111linno @christine_lovly @RedGia Hi Christine! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD The #LCSM survey results are coming up! |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: In a little while, I will announce Three topics (T1, T2, T3). Please label your answers with T1, T2, or T3 to make transcript easier to follow. #LCSM |
 | Lauren Meehan Machos, MPH @LaurenMachos #LCSM |
| #LCSM Chat @lcsmchat @1111linno Hi Linnea! #lcsm |
| #LCSM Chat @lcsmchat @steele_bob Hey Bob! #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: #LCSM Chat began almost 8 years ago! Many thanks to its two great founders and leaders, @JFreemanDaily & @LungCancerFaces |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: The #LCSM survey results are coming up! |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD @LungCancerFaces And our #LCSM Chat cofounders @DavidCookeMD @JackWestMD and @louisianagirl91! |
| #LCSM Chat @lcsmchat @MarksPhone Hi Mark! Great to see you again. #lcsm |
| #LCSM Chat @lcsmchat @LaurenMachos We see you, Lauren! Welcome. #lcsm |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @TimAllenMDJD @JFreemanDaily @LungCancerFaces Thank you @TimAllenMDJD & @JFreemanDaily & @LungCancerFaces for implementing and running #LCSM chat. I recently joined Twitter and I appreciate this #LCSM chat/platform to help lung cancers patients, caregivers and providers. |
 | Harpreet Singh, MD @harpreet_md @lcsmchat @LeciaSequist @MGHThoracicOnc Hi! Harpreet from @FDAOncology in listening mode tonight! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TimAllenMDJD @LungCancerFaces And our #LCSM Chat cofounders @DavidCookeMD @JackWestMD and @louisianagirl91! |
| #LCSM Chat @lcsmchat RT @RManochakian: @TimAllenMDJD @JFreemanDaily @LungCancerFaces Thank you @TimAllenMDJD & @JFreemanDaily & @LungCancerFaces for implementing and running #LCSM chat. I recently joined Twitter and I appreciate this #LCSM chat/platform to help lung cancers patients, caregivers and providers. |
 | John Novack @J2Novack Hello to the #lcsm community, John Novack from Inspire here to listen and learn. |
| Janet Freeman-Daily @JFreemanDaily Over the past week, the #LCSM Chat team conducted a survey about the chat and its participants. Before we start with questions, I'll share some survey results. |
| #LCSM Chat @lcsmchat @harpreet_md @LeciaSequist @MGHThoracicOnc @FDAOncology Thanks for joining us. Welcome! #lcsm |
| Janet Freeman-Daily @JFreemanDaily 2021 #LCSM Chat survey: About 2/3 of survey participants were patients who have/had #lungcancer or loved one/family member of someone who has/had #lungcancer. The majority of those were dealing with adenocarcinoma with a driving oncogene (EGFR, ALK, ROS1, etc.). |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: About 2/3 of survey participants were patients who have/had #lungcancer or loved one/family member of someone who has/had #lungcancer. The majority of those were dealing with adenocarcinoma with a driving oncogene (EGFR, ALK, ROS1, etc.). |
 | Aliye Bricker @AliyeBricker Hello all - 5 year survivor of stage RET+ lung cancer, just joining in on this chat as well, chiming in from snowy Cleveland!! #LCSM |
| #LCSM Chat @lcsmchat @J2Novack Hey John! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Over the past week, the #LCSM Chat team conducted a survey about the chat and its participants. Before we start with questions, I'll share some survey results. |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: About 2/3 of survey participants were patients who have/had #lungcancer or loved one/family member of someone who has/had #lungcancer. The majority of those were dealing with adenocarcinoma with a driving oncogene (EGFR, ALK, ROS1, etc.). |
| Janet Freeman-Daily @JFreemanDaily For got to add the cool SurveyMonkey graphics: from the #LCSM Chat survey: https://t.co/VQLGMbJ472 |
| Janet Freeman-Daily @JFreemanDaily 2021 #LCSM Chat survey: The other 1/3 of survey participants (were mostly healthcare providers, with the majority being medical oncologists. https://t.co/fhRDphHSeH |
| #LCSM Chat @lcsmchat @AliyeBricker Welcome! Thank you for joining this evening. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Welcome to the chat, @AliyeBricker! #LCSM |
 | Ishwaria Subbiah, MD MS @IshwariaMD @TimAllenMDJD @lcsmchat Hi #lcsm! #supportivecare #palliativecare physician in Houston. Peeking in this evening! #hpm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: For got to add the cool SurveyMonkey graphics: from the #LCSM Chat survey: For got to add the cool SurveyMonkey graphics: from the #LCSM Chat survey: https://t.co/VQLGMbJ472 |
| Janet Freeman-Daily @JFreemanDaily 2021 #LCSM Chat survey: Many of the survey participants are relatively new to the chat. About 1/3 joined for the first time in the past year. However, we did have some old-timers who have been with the chat from the beginning (July 2013). https://t.co/SVL3BRqXk0 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: The other 1/3 of survey participants (were mostly healthcare providers, with the majority being medical oncologists. https://t.co/fhRDphHSeH |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: The other 1/3 of survey participants (were mostly healthcare providers, with the majority being medical oncologists. https://t.co/fhRDphHSeH |
| John Novack @J2Novack RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: The other 1/3 of survey participants (were mostly healthcare providers, with the majority being medical oncologists. https://t.co/fhRDphHSeH |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: For got to add the cool SurveyMonkey graphics: from the #LCSM Chat survey: For got to add the cool SurveyMonkey graphics: from the #LCSM Chat survey: https://t.co/VQLGMbJ472 |
| Janet Freeman-Daily @JFreemanDaily 2021 #LCSM Chat survey: We also learned that not many survey respondents participated regularly, and almost NO ONE ever reads the blog posted before every chat on https://t.co/39i0y9oxgJ. The blog is the place to learn what the chat topic will be and what questions will be asked. |
| #LCSM Chat @lcsmchat @IshwariaMD @TimAllenMDJD Thanks for joining us! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Many of the survey participants are relatively new to the chat. About 1/3 joined for the first time in the past year. However, we did have some old-timers who have been with the chat from the beginning (July 2013). https://t.co/SVL3BRqXk0 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Many of the survey participants are relatively new to the chat. About 1/3 joined for the first time in the past year. However, we did have some old-timers who have been with the chat from the beginning (July 2013). https://t.co/SVL3BRqXk0 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: We also learned that not many survey respondents participated regularly, and almost NO ONE ever reads the blog posted before every chat on https://t.co/39i0y9oxgJ. The blog is the place to learn what the chat topic will be and what questions will be asked. |
 | Charu Aggarwal, MD, MPH @CharuAggarwalMD @IshwariaMD @TimAllenMDJD @lcsmchat so good to see you here! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #read #LCSM |
| Janet Freeman-Daily @JFreemanDaily 2021 #LCSM Chat survey: Most of the categories of topics we’ve covered over the years were generally considered very important. Clinical trials and research, patient quality of life, and patient care (screening, diagnosis, and treatment) were seen as most important. https://t.co/Gc5LXmsF0w |
| John Novack @J2Novack RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Most of the categories of topics we’ve covered over the years were generally considered very important. Clinical trials and research, patient quality of life, and patient care (screening, diagnosis, and treatment) were seen as most important. https://t.co/Gc5LXmsF0w |
| Janet Freeman-Daily @JFreemanDaily 2021 #LCSM Chat survey: Connections with other stakeholders, discussing key #lungcancer issues across silos, and hearing the patient perspective were most valued by survey participants. https://t.co/CGKKSh5H5R |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Most of the categories of topics we’ve covered over the years were generally considered very important. Clinical trials and research, patient quality of life, and patient care (screening, diagnosis, and treatment) were seen as most important. https://t.co/Gc5LXmsF0w |
| Janet Freeman-Daily @JFreemanDaily 2021 #LCSM Chat survey: Suggestions for ways to improve the chat include more frequent tutorials for participation, holding additional chats at other times, having less technical chats for patients, and promoting diverse voices and topics. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Connections with other stakeholders, discussing key #lungcancer issues across silos, and hearing the patient perspective were most valued by survey participants. https://t.co/CGKKSh5H5R |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD These are important! #LCSM |
| #LCSM Chat @lcsmchat @CharuAggarwalMD @IshwariaMD @TimAllenMDJD Great to have you on the team @CharuAggarwalMD! #lcsm |
| Ishwaria Subbiah, MD MS @IshwariaMD @CharuAggarwalMD @TimAllenMDJD @lcsmchat Same! 🤜🤛 looking forward to chiming in as the bebes will allow! #lcsm |
| kristen kimball @KimballKristen RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Connections with other stakeholders, discussing key #lungcancer issues across silos, and hearing the patient perspective were most valued by survey participants. https://t.co/CGKKSh5H5R |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Most of the categories of topics we’ve covered over the years were generally considered very important. Clinical trials and research, patient quality of life, and patient care (screening, diagnosis, and treatment) were seen as most important. https://t.co/Gc5LXmsF0w |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Connections with other stakeholders, discussing key #lungcancer issues across silos, and hearing the patient perspective were most valued by survey participants. https://t.co/CGKKSh5H5R |
| Janet Freeman-Daily @JFreemanDaily Now that the survey review is done, Mr. Moderator @TimAllenMDJD, let's start with the chat questions! #LCSM |
| Charu Aggarwal, MD, MPH @CharuAggarwalMD @lcsmchat @IshwariaMD @TimAllenMDJD Excited, honored and stoked to be here! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Suggestions for ways to improve the chat include more frequent tutorials for participation, holding additional chats at other times, having less technical chats for patients, and promoting diverse voices and topics. |
| Bob Steele @steele_bob RT @JFreemanDaily: For got to add the cool SurveyMonkey graphics: from the #LCSM Chat survey: For got to add the cool SurveyMonkey graphics: from the #LCSM Chat survey: https://t.co/VQLGMbJ472 |
| Bob Steele @steele_bob RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: The other 1/3 of survey participants (were mostly healthcare providers, with the majority being medical oncologists. https://t.co/fhRDphHSeH |
 | Mike Thompson, MD, PhD, FASCO @mtmdphd RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Connections with other stakeholders, discussing key #lungcancer issues across silos, and hearing the patient perspective were most valued by survey participants. https://t.co/CGKKSh5H5R |
| Bob Steele @steele_bob RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Many of the survey participants are relatively new to the chat. About 1/3 joined for the first time in the past year. However, we did have some old-timers who have been with the chat from the beginning (July 2013). https://t.co/SVL3BRqXk0 |
| Bob Steele @steele_bob RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Most of the categories of topics we’ve covered over the years were generally considered very important. Clinical trials and research, patient quality of life, and patient care (screening, diagnosis, and treatment) were seen as most important. https://t.co/Gc5LXmsF0w |
| Bob Steele @steele_bob RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Connections with other stakeholders, discussing key #lungcancer issues across silos, and hearing the patient perspective were most valued by survey participants. https://t.co/CGKKSh5H5R |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Yes, we must put complicated diagnostic and therapeutic concepts in language that can be understood by folks who didn't spend years studying #LungCancer! #LCSM |
| Lecia Sequist, MD, MPH @LeciaSequist This is interesting and important for us to remember. The narrative on LCSM is largely “driven” by driver oncogene patients, a minority of the lung cancer community. Goal for all of us: empower more lung cancer patients to share their thoughts and keep broadening our tents!! |
| Bob Steele @steele_bob RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: We also learned that not many survey respondents participated regularly, and almost NO ONE ever reads the blog posted before every chat on https://t.co/39i0y9oxgJ. The blog is the place to learn what the chat topic will be and what questions will be asked. |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Yes, we must put complicated diagnostic and therapeutic concepts in language that can be understood by folks who didn't spend years studying #LungCancer! #LCSM |
| John Novack @J2Novack RT @JFreemanDaily: 2021 #LCSM Chat survey: 2021 #LCSM Chat survey: Connections with other stakeholders, discussing key #lungcancer issues across silos, and hearing the patient perspective were most valued by survey participants. https://t.co/CGKKSh5H5R |
 | Christine Garcia, MD, MPH @christinemphmd @lcsmchat #LCSM Hi everyone! Medical oncologist here checking in between dinner/toddler bedtime! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD And #NoStigma #LCSM |
 | Balazs Halmos @DrSteveMartin @RManochakian @lcsmchat @TimAllenMDJD @JFreemanDaily @LungCancerFaces Getting home from long day of thoracic clinic I was supposed to watch Better Call Saul... but you know what - maybe i should Better Listen to #LCSM So much to learn from@patients Med onc Balazs Halmos here from Da Bronx, NY https://t.co/fz1TQPeNll |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD We’ll start with Topic T1 in a minute … #LCSM |
| #LCSM Chat @lcsmchat Please, if you haven’t introduced yourself, but are observing the chat, tweet out the hashtag #lcsm so we know you’re here. I see you... #LCSM |
| Janet Freeman-Daily @JFreemanDaily My #LCSM Chat tweeting from here on out will be somewhat impaired due to demands of the feline overlord. https://t.co/0keDlfUDGj |
| Lauren Meehan Machos, MPH @LaurenMachos RT @TimAllenMDJD: And #NoStigma #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: My #LCSM Chat tweeting from here on out will be somewhat impaired due to demands of the feline overlord. https://t.co/0keDlfUDGj |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD T1:How can we better serve #LCSM patients, families, and caregivers? |
| #LCSM Chat @lcsmchat @christinemphmd Welcome! We understand. #lcsm |
| John Novack @J2Novack RT @TimAllenMDJD: T1:How can we better serve #LCSM patients, families, and caregivers? |
| Lauren Meehan Machos, MPH @LaurenMachos RT @TimAllenMDJD: T1:How can we better serve #LCSM patients, families, and caregivers? |
| #LCSM Chat @lcsmchat @DrSteveMartin @RManochakian @TimAllenMDJD @JFreemanDaily @LungCancerFaces Very happy you’ve joined us tonight. #lcsm |
| Christine Garcia, MD, MPH @christinemphmd RT @TimAllenMDJD: And #NoStigma #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: My #LCSM Chat tweeting from here on out will be somewhat impaired due to demands of the feline overlord. https://t.co/0keDlfUDGj |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: T1:How can we better serve #LCSM patients, families, and caregivers? |
 | kathleen @kboyd05 #LCSM |
| Linnea Olson @1111linno #lcsm who is the we in we? |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @CharuAggarwalMD @lcsmchat @IshwariaMD @TimAllenMDJD #LCSM Same here. Simply an honor and privilege to join #LungCancerPatients and #Caregivers & wonderful #Providers Colleagues like yourself and the #Lcsm moderators and community. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD A1: We need to pay attention to our caregivers! Caregivers are unsung heroes. Many are also family members who share the shock of diagnosis, financial concerns, treatment decisions, and ups and downs of recovery. All while courageously providing care. #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @LeciaSequist: This is interesting and important for us to remember. The narrative on LCSM is largely “driven” by driver oncogene patients, a minority of the lung cancer community. Goal for all of us: empower more lung cancer patients to share their thoughts and keep broadening our tents!! |
 | Lynn Howie @LynnHowie1 RT @LeciaSequist: This is interesting and important for us to remember. The narrative on LCSM is largely “driven” by driver oncogene patients, a minority of the lung cancer community. Goal for all of us: empower more lung cancer patients to share their thoughts and keep broadening our tents!! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #LCSM |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @lcsmchat @DrSteveMartin @TimAllenMDJD @JFreemanDaily @LungCancerFaces #LCSM Indeed thanks for joining @DrSteveMartin after a long day. |
| Bob Steele @steele_bob RT @TimAllenMDJD: A1: A1: We need to pay attention to our caregivers! Caregivers are unsung heroes. Many are also family members who share the shock of diagnosis, financial concerns, treatment decisions, and ups and downs of recovery. All while courageously providing care. #LCSM |
| #LCSM Chat @lcsmchat T1: We need to get more patients involved in the chat, and on Twitter in general. We have lost many regular participants over the years. How can we engage them here? #LCSM |
| kristen kimball @KimballKristen RT @LeciaSequist: This is interesting and important for us to remember. The narrative on LCSM is largely “driven” by driver oncogene patients, a minority of the lung cancer community. Goal for all of us: empower more lung cancer patients to share their thoughts and keep broadening our tents!! |
| kristen kimball @KimballKristen RT @TimAllenMDJD: A1: A1: We need to pay attention to our caregivers! Caregivers are unsung heroes. Many are also family members who share the shock of diagnosis, financial concerns, treatment decisions, and ups and downs of recovery. All while courageously providing care. #LCSM |
| #LCSM Chat @lcsmchat @1111linno It’s me! Deana. xo #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: A1: A1: We need to pay attention to our caregivers! Caregivers are unsung heroes. Many are also family members who share the shock of diagnosis, financial concerns, treatment decisions, and ups and downs of recovery. All while courageously providing care. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: #LCSM |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @TimAllenMDJD #LCSM A1: Agree 100% Can never stress enough how important it is to support Caregivers. They are in the cancer fighting journey step by step with the patients. |
 | Christine Qiong Wu @wi_qiong How are you? How are you doing? #LCSM |
| Charu Aggarwal, MD, MPH @CharuAggarwalMD @lcsmchat I find that #LCSM is in general an engaged community, and would love to hear from all of you, again! #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: @TimAllenMDJD #LCSM A1: Agree 100% Can never stress enough how important it is to support Caregivers. They are in the cancer fighting journey step by step with the patients. |
| Linnea Olson @1111linno #lcsm T1 By making this conversation more inclusive? Perhaps we all need to invite someone who is new to LCSM... |
| #LCSM Chat @lcsmchat RT @CharuAggarwalMD: @lcsmchat I find that #LCSM is in general an engaged community, and would love to hear from all of you, again! #LCSM |
| Ishwaria Subbiah, MD MS @IshwariaMD @TimAllenMDJD A1: to serve better begins with better awareness of the needs of patients and caregivers. Ensure your clinics workflow integrates simple measures that capture patient and caregiver symptom burden. There are simple validated PRO measures for global symptom burden! #lcsm https://t.co/Il35yTtAZw |
| Christine Qiong Wu @wi_qiong @1111linno How are you doing? #LCSM |
| #LCSM Chat @lcsmchat RT @1111linno: #lcsm T1 By making this conversation more inclusive? Perhaps we all need to invite someone who is new to LCSM... |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @TimAllenMDJD A1: @TimAllenMDJD A1: to serve better begins with better awareness of the needs of patients and caregivers. Ensure your clinics workflow integrates simple measures that capture patient and caregiver symptom burden. There are simple validated PRO measures for global symptom burden! #lcsm https://t.co/Il35yTtAZw |
| Bob Steele @steele_bob RT @TimAllenMDJD: #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Keep shouting #LCSM from the mountain top! #LCSM has helped many patients understand diagnostic issues and treatment options! Never so important as our understanding of molecular pathology continues to grow! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #LungCancer patients' families struggle to understand. #LCSM must be there for them too! |
| #LCSM Chat @lcsmchat Great suggestion, Sue. #lcsm |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @lcsmchat #LCSM T1: Agree. Promoting the chat at different platforms and asking (us) providers to spread the word about it |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD This #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Keep shouting #LCSM from the mountain top! #LCSM has helped many patients understand diagnostic issues and treatment options! Never so important as our understanding of molecular pathology continues to grow! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: @TimAllenMDJD #LCSM A1: Agree 100% Can never stress enough how important it is to support Caregivers. They are in the cancer fighting journey step by step with the patients. |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: #LungCancer patients' families struggle to understand. #LCSM must be there for them too! |
| #LCSM Chat @lcsmchat RT @RManochakian: @lcsmchat #LCSM T1: Agree. Promoting the chat at different platforms and asking (us) providers to spread the word about it |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #LCSM is a very collegial and supportive team! |
| Lecia Sequist, MD, MPH @LeciaSequist @IshwariaMD @TimAllenMDJD Not having visitors in clinic this past year, which was obviously out of all of our control due to COVID, has been devastating for the provider:caregiver relationship and has highlighted for me how much information in a typical visit comes from caregivers not patients #LCSM |
| Christine Garcia, MD, MPH @christinemphmd @lcsmchat A1: Talk to patients about #LCSM! There's a whole virtual community out there for support! |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: #LCSM is a very collegial and supportive team! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: @lcsmchat #LCSM T1: Agree. Promoting the chat at different platforms and asking (us) providers to spread the word about it |
| Janet Freeman-Daily @JFreemanDaily RT @TimAllenMDJD: T1:How can we better serve #LCSM patients, families, and caregivers? |
| #LCSM Chat @lcsmchat RT @LeciaSequist: @IshwariaMD @TimAllenMDJD Not having visitors in clinic this past year, which was obviously out of all of our control due to COVID, has been devastating for the provider:caregiver relationship and has highlighted for me how much information in a typical visit comes from caregivers not patients #LCSM |
| Ishwaria Subbiah, MD MS @IshwariaMD @TimAllenMDJD Oh I’ll be adding #SchittsCreek GIFs to my tweets today. Hope that’s ok. #lcsm https://t.co/MfHHy3KCFr |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD 2d that! #LCSM |
| #LCSM Chat @lcsmchat RT @christinemphmd: @lcsmchat A1: @lcsmchat A1: Talk to patients about #LCSM! There's a whole virtual community out there for support! |
| #LCSM Chat @lcsmchat @IshwariaMD @TimAllenMDJD Totally OK! #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @lcsmchat: T1: T1: We need to get more patients involved in the chat, and on Twitter in general. We have lost many regular participants over the years. How can we engage them here? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Perhaps ask #LungCancer related medical societies to get more involved. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Perhaps ask #LungCancer related medical societies to get more involved. #LCSM |
| kristen kimball @KimballKristen @lcsmchat Is twitter too overwhelming for some? Even I always forget details like put #lcsm in the search field and then switch from "top" to "latest" to follow along! I forget this each time. And I use tech all the time...maybe try other platforms? (and keep doing this tweetchat!) |
| #LCSM Chat @lcsmchat RT @KimballKristen: @lcsmchat Is twitter too overwhelming for some? Even I always forget details like put #lcsm in the search field and then switch from "top" to "latest" to follow along! I forget this each time. And I use tech all the time...maybe try other platforms? (and keep doing this tweetchat!) |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD This is something all physicians need to always remember! #LCSM |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @IshwariaMD @TimAllenMDJD #LCSM T1: couldn’t agree more @IshwariaMD And this is why integrating #palliativecare for every patient with advanced #lungcancer (as early as possible) is essential. Palliative care team work together with oncology team to support patients and caregivers. |
| Janet Freeman-Daily @JFreemanDaily RT @1111linno: #lcsm T1 By making this conversation more inclusive? Perhaps we all need to invite someone who is new to LCSM... |
| kristen kimball @KimballKristen RT @christinemphmd: @lcsmchat A1: @lcsmchat A1: Talk to patients about #LCSM! There's a whole virtual community out there for support! |
| Linnea Olson @1111linno #lcsm twitter doesn't go fast enough for me ;) but I can see how it would be overwhelming if you were unfamiliar with the format. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KimballKristen: @lcsmchat Is twitter too overwhelming for some? Even I always forget details like put #lcsm in the search field and then switch from "top" to "latest" to follow along! I forget this each time. And I use tech all the time...maybe try other platforms? (and keep doing this tweetchat!) |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian #LCSM T1: Integrating #palliativecare for every patient with advanced #lungcancer (as early as possible) is essential. Palliative care team work together with oncology team to support patients and caregivers. #LCSM |
| Christine Garcia, MD, MPH @christinemphmd @TimAllenMDJD A1: totally agree. Caregiver #burnout is real. We need to support these folks supporting our patients. #LCSM |
| Ishwaria Subbiah, MD MS @IshwariaMD @TimAllenMDJD A1: if you have a free minute, @jacobadashek and I wrote in @myESMO on Caring for the caregiver: a systematic review characterising the experience of caregivers of older adults with advanced cancers. Summarizes data on caregiver impact. #gerionc #lcsm https://t.co/JlTJTrTPDR |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD You're always ahead of the pack, @1111linno! #LCSM |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @1111linno: #lcsm twitter doesn't go fast enough for me ;) but I can see how it would be overwhelming if you were unfamiliar with the format. |
| Janet Freeman-Daily @JFreemanDaily RT @LeciaSequist: @IshwariaMD @TimAllenMDJD Not having visitors in clinic this past year, which was obviously out of all of our control due to COVID, has been devastating for the provider:caregiver relationship and has highlighted for me how much information in a typical visit comes from caregivers not patients #LCSM |
| Christine Qiong Wu @wi_qiong @IshwariaMD @TimAllenMDJD It's a Canadian comedy. Cool. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: @IshwariaMD @TimAllenMDJD #LCSM T1: couldn’t agree more @IshwariaMD And this is why integrating #palliativecare for every patient with advanced #lungcancer (as early as possible) is essential. Palliative care team work together with oncology team to support patients and caregivers. |
| #LCSM Chat @lcsmchat RT @1111linno: #lcsm twitter doesn't go fast enough for me ;) but I can see how it would be overwhelming if you were unfamiliar with the format. |
| #LCSM Chat @lcsmchat RT @RManochakian: @IshwariaMD @TimAllenMDJD #LCSM T1: couldn’t agree more @IshwariaMD And this is why integrating #palliativecare for every patient with advanced #lungcancer (as early as possible) is essential. Palliative care team work together with oncology team to support patients and caregivers. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you for sharing, @IshwariaMD! #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @christinemphmd: @TimAllenMDJD A1: @TimAllenMDJD A1: totally agree. Caregiver #burnout is real. We need to support these folks supporting our patients. #LCSM |
| Linnea Olson @1111linno #lcsm T1 What if we had discussions centered around not subject but subject matter--for instance, a night devoted to caregivers. And of course, we would extend invitations. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: #LCSM T1: Integrating #palliativecare for every patient with advanced #lungcancer (as early as possible) is essential. Palliative care team work together with oncology team to support patients and caregivers. #LCSM |
| #LCSM Chat @lcsmchat RT @christinemphmd: @TimAllenMDJD A1: @TimAllenMDJD A1: totally agree. Caregiver #burnout is real. We need to support these folks supporting our patients. #LCSM |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @TimAllenMDJD A1: if you have a free minute, @jacobadashek and I wrote in @myESMO on Caring for the caregiver: @TimAllenMDJD A1: if you have a free minute, @jacobadashek and I wrote in @myESMO on Caring for the caregiver: a systematic review characterising the experience of caregivers of older adults with advanced cancers. Summarizes data on caregiver impact. #gerionc #lcsm https://t.co/JlTJTrTPDR |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Great idea! #LCSM |
| #LCSM Chat @lcsmchat RT @1111linno: #lcsm T1 What if we had discussions centered around not subject but subject matter--for instance, a night devoted to caregivers. And of course, we would extend invitations. |
| Ishwaria Subbiah, MD MS @IshwariaMD @RManochakian @TimAllenMDJD 🤜🤛 I mean. It’s data! #PalliativeCare collaborative care is patient-centered care! #lcsm https://t.co/W1bnj9OzVX |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Topic T2 is coming up … #LCSM |
| #LCSM Chat @lcsmchat #lcsm |
| Janet Freeman-Daily @JFreemanDaily @KimballKristen @lcsmchat Indeed, tweetchats can be overwhelming, and some people have trouble navigating--comments in the survey said as much. But when we offer tutorials and practice chats, no one shows up ... **whine** #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @KimballKristen @lcsmchat Indeed, tweetchats can be overwhelming, and some people have trouble navigating--comments in the survey said as much. But when we offer tutorials and practice chats, no one shows up ... **whine** #LCSM |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @RManochakian @TimAllenMDJD 🤜🤛 I mean. It’s data! #PalliativeCare collaborative care is patient-centered care! #lcsm https://t.co/W1bnj9OzVX |
| Bob Steele @steele_bob RT @IshwariaMD: @RManochakian @TimAllenMDJD 🤜🤛 I mean. It’s data! #PalliativeCare collaborative care is patient-centered care! #lcsm https://t.co/W1bnj9OzVX |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @KimballKristen @lcsmchat Indeed, tweetchats can be overwhelming, and some people have trouble navigating--comments in the survey said as much. But when we offer tutorials and practice chats, no one shows up ... **whine** #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD T2:How can we better serve #LCSM healthcare providers and other stakeholders? |
| Ishwaria Subbiah, MD MS @IshwariaMD @wi_qiong @TimAllenMDJD One of many spectacular contributions from 🇨🇦! #lcsm https://t.co/Wpm9FZOJA8 |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @1111linno #lcsm Devoting a night just for caregivers or to address caregivers issues is a great idea. 👌🏻👌🏻 @1111linno @JFreemanDaily @TimAllenMDJD @LungCancerFaces @lcsmchat |
| #LCSM Chat @lcsmchat @SueMcCu30398663 @1111linno Remember to add #lcsm to your tweets so everyone can see them. I’ve been doing it for you. Don’t fret. You’re doing great. Learning curve. |
| #LCSM Chat @lcsmchat #lcsm |
| Linnea Olson @1111linno #lcsm T1 Pathology night. Oncologist night. Pharma night. Payer night (heck, why not). Invite LUNGevity to host one night, GO2 another, etc.... |
| Bob Steele @steele_bob RT @RManochakian: @1111linno #lcsm Devoting a night just for caregivers or to address caregivers issues is a great idea. 👌🏻👌🏻 @1111linno @JFreemanDaily @TimAllenMDJD @LungCancerFaces @lcsmchat |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: @SueMcCu30398663 @1111linno Remember to add #lcsm to your tweets so everyone can see them. I’ve been doing it for you. Don’t fret. You’re doing great. Learning curve. |
 | Nicole Karapanagiotis, Ph.D. @ProfessorNK Hi everyone, caregiver lurking from Wilmington, DE. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: @1111linno #lcsm Devoting a night just for caregivers or to address caregivers issues is a great idea. 👌🏻👌🏻 @1111linno @JFreemanDaily @TimAllenMDJD @LungCancerFaces @lcsmchat |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD A2: Besides physicians, there are lots of folks, even folks behind the scenes, who serve #LungCancer patients and families, including nurses, respiratory therapists, dieticians, nurses, and social services folks. #LCSM |
| Charu Aggarwal, MD, MPH @CharuAggarwalMD this is a great idea @1111linno #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: #lcsm |
| kristen kimball @KimballKristen I can't imagine not having been able to accompany @VoicesForUS Dave to his clinic appointments - he'd have done OK but I'd have been frantic. #lcsm |
| Bob Steele @steele_bob RT @1111linno: #lcsm T1 Pathology night. Oncologist night. Pharma night. Payer night (heck, why not). Invite LUNGevity to host one night, GO2 another, etc.... |
| kristen kimball @KimballKristen RT @LeciaSequist: @IshwariaMD @TimAllenMDJD Not having visitors in clinic this past year, which was obviously out of all of our control due to COVID, has been devastating for the provider:caregiver relationship and has highlighted for me how much information in a typical visit comes from caregivers not patients #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Join in! The #LCSM team doesn't bite! |
| #LCSM Chat @lcsmchat @ProfessorNK Hi Nicole! Former caregiver here. It’s a tough, rewarding job. xo #lcsm |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @TimAllenMDJD #LCSM Thank you for bringing this up. You’re absolutely correct. It’s a whole team and everyone’s contribution is so essential to help patients and caregivers. |
| Linnea Olson @1111linno #lcsm T2 By asking them what is important to them. A lot of emphasis on patient centricity, but let's shift that emphasis at times as well. |
| Lauren Meehan Machos, MPH @LaurenMachos RT @1111linno: #lcsm T1 Pathology night. Oncologist night. Pharma night. Payer night (heck, why not). Invite LUNGevity to host one night, GO2 another, etc.... |
| #LCSM Chat @lcsmchat RT @1111linno: #lcsm T1 Pathology night. Oncologist night. Pharma night. Payer night (heck, why not). Invite LUNGevity to host one night, GO2 another, etc.... |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Yeah! #LCSM |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @ProfessorNK Welcome. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: T2:How can we better serve #LCSM healthcare providers and other stakeholders? |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: A2: A2: Besides physicians, there are lots of folks, even folks behind the scenes, who serve #LungCancer patients and families, including nurses, respiratory therapists, dieticians, nurses, and social services folks. #LCSM |
| #LCSM Chat @lcsmchat RT @KimballKristen: I can't imagine not having been able to accompany @VoicesForUS Dave to his clinic appointments - he'd have done OK but I'd have been frantic. #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @TimAllenMDJD: A2: A2: Besides physicians, there are lots of folks, even folks behind the scenes, who serve #LungCancer patients and families, including nurses, respiratory therapists, dieticians, nurses, and social services folks. #LCSM |
| Ishwaria Subbiah, MD MS @IshwariaMD @RManochakian @1111linno @JFreemanDaily @TimAllenMDJD @LungCancerFaces @lcsmchat <<rustles papers...finds phone...opens calendar>>> date and time please #lcsm #caregiversnight https://t.co/RPpe9rzsOH |
| kristen kimball @KimballKristen @JFreemanDaily @lcsmchat I know... as I wrote that I thought of the instructions in LCSMchat... #lcsm |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @1111linno I really like this concept of devoting nights to certain groups. Keep them coming @1111linno #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @RManochakian: @TimAllenMDJD #LCSM Thank you for bringing this up. You’re absolutely correct. It’s a whole team and everyone’s contribution is so essential to help patients and caregivers. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Understanding everyone's perspective provides a powerful view of #lungcancer #LCSM |
 | G. Ahmed,M.D @AhemdDr RT @lcsmchat: T1: T1: We need to get more patients involved in the chat, and on Twitter in general. We have lost many regular participants over the years. How can we engage them here? #LCSM |
| #LCSM Chat @lcsmchat @KimballKristen @VoicesForUS It’s so incredibly helpful to have the caregiver at appointments, if only for another pair of ears. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #GoTeam #LCSM |
| #LCSM Chat @lcsmchat RT @1111linno: #lcsm T2 By asking them what is important to them. A lot of emphasis on patient centricity, but let's shift that emphasis at times as well. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: @ProfessorNK Hi Nicole! Former caregiver here. It’s a tough, rewarding job. xo #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Caregivers have #courage #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @CharuAggarwalMD: this is a great idea @1111linno #LCSM |
 | Jacob J. Adashek, DO @jacobadashek RT @IshwariaMD: @TimAllenMDJD A1: if you have a free minute, @jacobadashek and I wrote in @myESMO on Caring for the caregiver: @TimAllenMDJD A1: if you have a free minute, @jacobadashek and I wrote in @myESMO on Caring for the caregiver: a systematic review characterising the experience of caregivers of older adults with advanced cancers. Summarizes data on caregiver impact. #gerionc #lcsm https://t.co/JlTJTrTPDR |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: @KimballKristen @VoicesForUS It’s so incredibly helpful to have the caregiver at appointments, if only for another pair of ears. #lcsm |
 | Sue McCullough @SueMcCu30398663 @JFreemanDaily @lcsmchat @KimballKristen #lcsm Sorry Janet, if I had known about a tutorial I would have signed in, but I probably don't sign into twitter enough, a face book message like yesterday was great as a reminder. Life has been busy lately, like everybody else's. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: @1111linno I really like this concept of devoting nights to certain groups. Keep them coming @1111linno #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KimballKristen: @JFreemanDaily @lcsmchat I know... as I wrote that I thought of the instructions in LCSMchat... #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @1111linno: #lcsm T2 By asking them what is important to them. A lot of emphasis on patient centricity, but let's shift that emphasis at times as well. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: @TimAllenMDJD #LCSM Thank you for bringing this up. You’re absolutely correct. It’s a whole team and everyone’s contribution is so essential to help patients and caregivers. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @SueMcCu30398663: @JFreemanDaily @lcsmchat @KimballKristen #lcsm Sorry Janet, if I had known about a tutorial I would have signed in, but I probably don't sign into twitter enough, a face book message like yesterday was great as a reminder. Life has been busy lately, like everybody else's. |
 | Virginia Kivlighan @vkivlighan @RManochakian @lcsmchat @IshwariaMD @TimAllenMDJD It made all the difference w my late mom when we finally were connected to #PalliativeCare (This was years ago.) Prior, we were bouncing between different oncology teams and no one point person. #lungcancer #LCSM |
 | Dr. Jan Marie Eberth @jmeberth @lcsmchat Perhaps patients could submit thoughts through another mechanism (email, phone, web form) and someone could be responsible for sharing their perspectives. Not everyone wants a Twitter account :) #LCSM |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @LeciaSequist @IshwariaMD @TimAllenMDJD Couldn’t agree more @LeciaSequist Outpatient visits or treatments visits to a cancer center are tough for patients and much tougher when they come alone. Same thing for inpatient admissions. Hope things are getting better #LCSM. |
| Lauren Meehan Machos, MPH @LaurenMachos @MarksPhone I believe Dr. @ipreeshagul posted earlier today on a Heme/Onc Clubhouse channel. Maybe a #lcsm channel can be started too |
| #LCSM Chat @lcsmchat @SueMcCu30398663 @JFreemanDaily @KimballKristen Maybe we should try another online tutorial. It’s been a long time since we did one. Perhaps more tweeps will show up. #lcsm |
| kristen kimball @KimballKristen @ProfessorNK Hi Nicole, another former caregiver. welcome. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: @SueMcCu30398663 @JFreemanDaily @KimballKristen Maybe we should try another online tutorial. It’s been a long time since we did one. Perhaps more tweeps will show up. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @LaurenMachos: @MarksPhone I believe Dr. @ipreeshagul posted earlier today on a Heme/Onc Clubhouse channel. Maybe a #lcsm channel can be started too |
| Linnea Olson @1111linno #lcsm T2 If we really want to understand this ecosystem, we need to listen to what everyone has to say. Top to bottom, inside, outside. Healthy is heard. |
| Bob Steele @steele_bob RT @LaurenMachos: @MarksPhone I believe Dr. @ipreeshagul posted earlier today on a Heme/Onc Clubhouse channel. Maybe a #lcsm channel can be started too |
| #LCSM Chat @lcsmchat Another great idea. #lcsm |
| #LCSM Chat @lcsmchat RT @vkivlighan: @RManochakian @lcsmchat @IshwariaMD @TimAllenMDJD It made all the difference w my late mom when we finally were connected to #PalliativeCare (This was years ago.) Prior, we were bouncing between different oncology teams and no one point person. #lungcancer #LCSM |
| #LCSM Chat @lcsmchat RT @jmeberth: @lcsmchat Perhaps patients could submit thoughts through another mechanism (email, phone, web form) and someone could be responsible for sharing their perspectives. Not everyone wants a Twitter account :) #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Gotta get past the #COVID19 #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jmeberth: @lcsmchat Perhaps patients could submit thoughts through another mechanism (email, phone, web form) and someone could be responsible for sharing their perspectives. Not everyone wants a Twitter account :) #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: @LeciaSequist @IshwariaMD @TimAllenMDJD Couldn’t agree more @LeciaSequist Outpatient visits or treatments visits to a cancer center are tough for patients and much tougher when they come alone. Same thing for inpatient admissions. Hope things are getting better #LCSM. |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @jmeberth @lcsmchat #LCSM Very good suggestion @jmeberth May need some more coordination and more help but doable. |
| #LCSM Chat @lcsmchat RT @RManochakian: @LeciaSequist @IshwariaMD @TimAllenMDJD Couldn’t agree more @LeciaSequist Outpatient visits or treatments visits to a cancer center are tough for patients and much tougher when they come alone. Same thing for inpatient admissions. Hope things are getting better #LCSM. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Not everyone fully understands #PalliativeCare #LCSM can help explain it. |
| #LCSM Chat @lcsmchat RT @LaurenMachos: @MarksPhone I believe Dr. @ipreeshagul posted earlier today on a Heme/Onc Clubhouse channel. Maybe a #lcsm channel can be started too |
| #LCSM Chat @lcsmchat RT @1111linno: #lcsm T2 If we really want to understand this ecosystem, we need to listen to what everyone has to say. Top to bottom, inside, outside. Healthy is heard. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: @jmeberth @lcsmchat #LCSM Very good suggestion @jmeberth May need some more coordination and more help but doable. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: Another great idea. #lcsm |
| Bob Steele @steele_bob RT @TimAllenMDJD: Not everyone fully understands #PalliativeCare #LCSM can help explain it. |
| Balazs Halmos @DrSteveMartin @1111linno Twitter is totally foreign territory for most pts But they’ll most certainly Google “lung cancer” once -that’s the opportunity to engage them in a social media home and keeping them connected to over time Companies and advocacy orgs should join forces for 1 common interface #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Communication is everything. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KimballKristen: @ProfessorNK Hi Nicole, another former caregiver. welcome. #LCSM |
| Christine Qiong Wu @wi_qiong @jmeberth @lcsmchat That's an excellent idea! #LCSM @jmeberth |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @ProfessorNK @lcsmchat #lcsm Love it @ProfessorNK |
| #LCSM Chat @lcsmchat RT @DrSteveMartin: @1111linno Twitter is totally foreign territory for most pts But they’ll most certainly Google “lung cancer” once -that’s the opportunity to engage them in a social media home and keeping them connected to over time Companies and advocacy orgs should join forces for 1 common interface #lcsm |
| Janet Freeman-Daily @JFreemanDaily @MarksPhone Might need a bit more structure--audio chats don't translate well into tweetchats that are limited to 280-character thought bites. Tweetchats are kinda disjointed for that reason. #LCSM |
| Sue McCullough @SueMcCu30398663 @lcsmchat @JFreemanDaily @KimballKristen #lcsm this will show how un-twitter I am, is there a difference between a tweet and a tweep? I have got a sense of humour. That shows you how much I need a tutorial. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DrSteveMartin: @1111linno Twitter is totally foreign territory for most pts But they’ll most certainly Google “lung cancer” once -that’s the opportunity to engage them in a social media home and keeping them connected to over time Companies and advocacy orgs should join forces for 1 common interface #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD We’ll shift to Topic T3 next … #LCSM |
| Christine Garcia, MD, MPH @christinemphmd @LaurenMachos @MarksPhone @ipreeshagul Would def join in on a #LCSM CH channel @joinClubhouse! Great to have changing topics, group focus (caregiver night!), open forum/ town hall style. Exciting! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @SueMcCu30398663: @lcsmchat @JFreemanDaily @KimballKristen #lcsm this will show how un-twitter I am, is there a difference between a tweet and a tweep? I have got a sense of humour. That shows you how much I need a tutorial. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @MarksPhone Might need a bit more structure--audio chats don't translate well into tweetchats that are limited to 280-character thought bites. Tweetchats are kinda disjointed for that reason. #LCSM |
| #LCSM Chat @lcsmchat @SueMcCu30398663 @JFreemanDaily @KimballKristen Tweep is what I call people on Twitter. My bad. #lcsm |
| Bob Steele @steele_bob RT @TheWRP4LC: Nice! Dr. Ross Camidge & his top notch #lungcancer care team supporting survivors w/#love #kindness & #ADVOCACY w/#thewhiteribbonproject. Standing together we can change the public perception of LC! @CUCancerCenter should be proud! #ItsUp2Us #neveralone #inclusive #lcsm https://t.co/6u2YHQmAfG |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @christinemphmd: @LaurenMachos @MarksPhone @ipreeshagul Would def join in on a #LCSM CH channel @joinClubhouse! Great to have changing topics, group focus (caregiver night!), open forum/ town hall style. Exciting! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD T3:What topics would be most interesting in future chats? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @MarksPhone Might need a bit more structure--audio chats don't translate well into tweetchats that are limited to 280-character thought bites. Tweetchats are kinda disjointed for that reason. #LCSM |
| #LCSM Chat @lcsmchat RT @christinemphmd: @LaurenMachos @MarksPhone @ipreeshagul Would def join in on a #LCSM CH channel @joinClubhouse! Great to have changing topics, group focus (caregiver night!), open forum/ town hall style. Exciting! |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: T3:What topics would be most interesting in future chats? #LCSM |
| Christine Garcia, MD, MPH @christinemphmd @ipreeshagul @LaurenMachos @MarksPhone @joinClubhouse Let's do it! #LCSM |
| Lauren Meehan Machos, MPH @LaurenMachos @DrSteveMartin @1111linno 2/2 advocacy organizations could potentially have increased drivers on internet searches for #lcsm |
| #LCSM Chat @lcsmchat #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD A3: The psychological turmoil of #LungCancer can make diagnosis and treatment feel like a roller coaster ride for patients and their families yet it often goes undiscussed or underdiscussed. Perhaps a topic for the future? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @LaurenMachos: @DrSteveMartin @1111linno 2/2 advocacy organizations could potentially have increased drivers on internet searches for #lcsm |
| kristen kimball @KimballKristen @SueMcCu30398663 @lcsmchat @JFreemanDaily @SueMcCu30398663 after tonight you're an expert in Twitter #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: A3: A3: The psychological turmoil of #LungCancer can make diagnosis and treatment feel like a roller coaster ride for patients and their families yet it often goes undiscussed or underdiscussed. Perhaps a topic for the future? #LCSM |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian #LCSM T3: Financial burden on patients and caregivers. I think may have been discussed before but never enough, especially now with a lot of new targeted therapies. There are so many resources out there we could highlight @lcsmchat @JFreemanDaily @TimAllenMDJD |
| Ishwaria Subbiah, MD MS @IshwariaMD @LaurenMachos @MarksPhone @ipreeshagul Yes! #lcsm, Join the Heme/Onc Club on @joinClubhouse - open to all in the onco-verse! Multidisciplinary setting with discussions around new studies, patient conversations, and more! Especially around conference times #AACR21 #ASCO21. DM for link to club 🤜🤛 https://t.co/onKXH7KlMZ |
| Aliye Bricker @AliyeBricker A1: I think ultimately many pts sign in hoping to glean info that might help them live longer. While oncogene driven groups are great at this, LCSM speaks to the larger lung ca community - maybe more chats on broad topics like immunotherapy, when to biopsy (liq vs tissue) ? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Huge issue. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD T3: Definitely heard two requests already for future #LCSM Chat topics : palliative care caregiver supports |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @TimAllenMDJD T3: Definitely heard two requests already for future #LCSM Chat topics : @TimAllenMDJD T3: Definitely heard two requests already for future #LCSM Chat topics : palliative care caregiver supports |
 | Isabel Preeshagul @ipreeshagul RT @IshwariaMD: @LaurenMachos @MarksPhone @ipreeshagul Yes! #lcsm, Join the Heme/Onc Club on @joinClubhouse - open to all in the onco-verse! Multidisciplinary setting with discussions around new studies, patient conversations, and more! Especially around conference times #AACR21 #ASCO21. DM for link to club 🤜🤛 https://t.co/onKXH7KlMZ |
| Linnea Olson @1111linno #lcsm T3 I feel it makes sense for LCSM to expand into other venues such as Clubhouse. But continue to use twitter for its strengths. That which is retweetable. |
| #LCSM Chat @lcsmchat RT @RManochakian: #LCSM T3: Financial burden on patients and caregivers. I think may have been discussed before but never enough, especially now with a lot of new targeted therapies. There are so many resources out there we could highlight @lcsmchat @JFreemanDaily @TimAllenMDJD |
 | Eden Lake @EdenLake Super late thanks to down atm forcing me to a 2nd branch. Glad to be here & catching up #lcsm |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @LaurenMachos @MarksPhone @ipreeshagul Yes! #lcsm, Join the Heme/Onc Club on @joinClubhouse - open to all in the onco-verse! Multidisciplinary setting with discussions around new studies, patient conversations, and more! Especially around conference times #AACR21 #ASCO21. DM for link to club 🤜🤛 https://t.co/onKXH7KlMZ |
| #LCSM Chat @lcsmchat RT @AliyeBricker: A1: A1: I think ultimately many pts sign in hoping to glean info that might help them live longer. While oncogene driven groups are great at this, LCSM speaks to the larger lung ca community - maybe more chats on broad topics like immunotherapy, when to biopsy (liq vs tissue) ? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TimAllenMDJD T3: Definitely heard two requests already for future #LCSM Chat topics : @TimAllenMDJD T3: Definitely heard two requests already for future #LCSM Chat topics : palliative care caregiver supports |
| #LCSM Chat @lcsmchat RT @1111linno: #lcsm T3 I feel it makes sense for LCSM to expand into other venues such as Clubhouse. But continue to use twitter for its strengths. That which is retweetable. |
| Lauren Meehan Machos, MPH @LaurenMachos @AliyeBricker I second this! And a topic on biomarker testing! #lcsm |
| #LCSM Chat @lcsmchat @EdenLake Hey, lady! #lcsm |
| #LCSM Chat @lcsmchat RT @LaurenMachos: @AliyeBricker I second this! And a topic on biomarker testing! #lcsm |
| Ishwaria Subbiah, MD MS @IshwariaMD @TimAllenMDJD Hear hear!!! #PalliativeCare is comprehensive holistic symptom management by a sub-specialty medical team of multidisciplinary professionals for you and your family at any stage and time in your cancer journey! Phew. Now for a breath. #lcsm #hapc #hpm https://t.co/CQ3urjPQ75 |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD A3: Potential #LCSM future topic from the Pathologist: Understanding molecular biomarker testing without using too many complicated words! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @1111linno: #lcsm T3 I feel it makes sense for LCSM to expand into other venues such as Clubhouse. But continue to use twitter for its strengths. That which is retweetable. |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian #LCSM T3: A session on what questions to ask the doctor. Another session on mindfulness and coping with cancer. @lcsmchat |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD A3: How are we going to defeat STIGMA once and for all? #NoStigma #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: #LCSM T3: A session on what questions to ask the doctor. Another session on mindfulness and coping with cancer. @lcsmchat |
| Lauren Meehan Machos, MPH @LaurenMachos RT @TimAllenMDJD: A3: Potential #LCSM future topic from the Pathologist: A3: Potential #LCSM future topic from the Pathologist: Understanding molecular biomarker testing without using too many complicated words! |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @TimAllenMDJD Hear hear!!! #PalliativeCare is comprehensive holistic symptom management by a sub-specialty medical team of multidisciplinary professionals for you and your family at any stage and time in your cancer journey! Phew. Now for a breath. #lcsm #hapc #hpm https://t.co/CQ3urjPQ75 |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD A3: Perhaps a topic @LUNGevity knows a lot about: Using a standardized vocabulary for molecular testing and treatment. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: A3: Potential #LCSM future topic from the Pathologist: A3: Potential #LCSM future topic from the Pathologist: Understanding molecular biomarker testing without using too many complicated words! |
 | Jill Feldman @jillfeldman4 @TimAllenMDJD Just joining....a little late. Great topic, psycho social aspects of cancer. Not talked about enough at all. #LCSM |
| Eden Lake @EdenLake @lcsmchat @SueMcCu30398663 @JFreemanDaily @KimballKristen Might be a good time for a refresher #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: #LCSM T3: A session on what questions to ask the doctor. Another session on mindfulness and coping with cancer. @lcsmchat |
| Bob Steele @steele_bob RT @TimAllenMDJD: A3: Perhaps a topic @LUNGevity knows a lot about: A3: Perhaps a topic @LUNGevity knows a lot about: Using a standardized vocabulary for molecular testing and treatment. #LCSM |
| Janet Freeman-Daily @JFreemanDaily And a reminder to all: you can find transcripts of ALL past #LCSM chats on our website at https://t.co/PzmNSvHw9T |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: A3: A3: How are we going to defeat STIGMA once and for all? #NoStigma #LCSM |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @TimAllenMDJD #lcsm Very important @TimAllenMDJD How to simplify exposing pathology and biomarkers. There are plenty of good resources but need to point toward them. |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: A3: Perhaps a topic @LUNGevity knows a lot about: A3: Perhaps a topic @LUNGevity knows a lot about: Using a standardized vocabulary for molecular testing and treatment. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jillfeldman4: @TimAllenMDJD Just joining....a little late. Great topic, psycho social aspects of cancer. Not talked about enough at all. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: And a reminder to all: And a reminder to all: you can find transcripts of ALL past #LCSM chats on our website at https://t.co/PzmNSvHw9T |
| #LCSM Chat @lcsmchat @jillfeldman4 @TimAllenMDJD Hey Rockstar! #lcsm |
 | Oncology Times @OncologyTimes RT @OncologyTimes: NEW online: NEW online: Immunotherapy Creates Balancing Act for Patients With Non-Small Cell #LungCancer https://t.co/0p7X8HDcFv #lcsm #cancertreatment #medtwitter via @DrJNaidoo @JohnsHopkins https://t.co/Y4SSUdnPOH |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: And a reminder to all: And a reminder to all: you can find transcripts of ALL past #LCSM chats on our website at https://t.co/PzmNSvHw9T |
| #LCSM Chat @lcsmchat RT @RManochakian: @TimAllenMDJD #lcsm Very important @TimAllenMDJD How to simplify exposing pathology and biomarkers. There are plenty of good resources but need to point toward them. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: @TimAllenMDJD #lcsm Very important @TimAllenMDJD How to simplify exposing pathology and biomarkers. There are plenty of good resources but need to point toward them. |
| Ishwaria Subbiah, MD MS @IshwariaMD @christinemphmd @TimAllenMDJD What👏are 👏you 👏waiting 👏for. #SchittsCreek is streaming for free in @IMDbTV on @PrimeVideo. #lcsm https://t.co/hAb30GIsUc |
| Oncology Times @OncologyTimes RT @OncologyTimes: NEW online: NEW online: Researchers Uncover a Potential Treatment for Aggressive Form of #LungCancer https://t.co/JpJo9pkINI #cancertreatment #medtwitter #lcsm via @RJDLab @CRI_UTSW https://t.co/4tdcm8cW9K |
| Lecia Sequist, MD, MPH @LeciaSequist @TimAllenMDJD how about a tweet on radiology scan reports now that most patients have access to their scans. So much unnecessary worrying about reporting normal or marginally important things using big words that don’t translate well on google 🙁 #LCSM |
| Balazs Halmos @DrSteveMartin @LaurenMachos @1111linno I love it- just imagine one go-to lung cancer patient home on the web from where pts could branch out for Biomarkers/treatments Toxicity management Blogs Special interest groups Spanish/Chinese etc channel Friendship circles Like a real welcoming advocacy family #LCSM https://t.co/f4bIfoaDzy |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Same with the Pathologist's diagnostic report. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DrSteveMartin: @LaurenMachos @1111linno I love it- just imagine one go-to lung cancer patient home on the web from where pts could branch out for Biomarkers/treatments Toxicity management Blogs Special interest groups Spanish/Chinese etc channel Friendship circles Like a real welcoming advocacy family #LCSM https://t.co/f4bIfoaDzy |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian #LCSM T3: How to support children of cancer patients? Highlight some resources and support groups. @JFreemanDaily @TimAllenMDJD @lcsmchat |
| kristen kimball @KimballKristen RT @LeciaSequist: @TimAllenMDJD how about a tweet on radiology scan reports now that most patients have access to their scans. So much unnecessary worrying about reporting normal or marginally important things using big words that don’t translate well on google 🙁 #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD We’re in our final minutes - closing thoughts? #LCSM |
| #LCSM Chat @lcsmchat I’m seeing several people hitting the “like” button. Please don’t be shy. It’s not too late to introduce yourselves. We are very friendly. Make sure to include the #LCSM hashtag. |
| #LCSM Chat @lcsmchat RT @LeciaSequist: @TimAllenMDJD how about a tweet on radiology scan reports now that most patients have access to their scans. So much unnecessary worrying about reporting normal or marginally important things using big words that don’t translate well on google 🙁 #LCSM |
| #LCSM Chat @lcsmchat RT @DrSteveMartin: @LaurenMachos @1111linno I love it- just imagine one go-to lung cancer patient home on the web from where pts could branch out for Biomarkers/treatments Toxicity management Blogs Special interest groups Spanish/Chinese etc channel Friendship circles Like a real welcoming advocacy family #LCSM https://t.co/f4bIfoaDzy |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Same with the Pathologist's diagnostic report. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you for mentioning the children. #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: #LCSM T3: How to support children of cancer patients? Highlight some resources and support groups. @JFreemanDaily @TimAllenMDJD @lcsmchat |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: We’re in our final minutes - closing thoughts? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: I’m seeing several people hitting the “like” button. Please don’t be shy. It’s not too late to introduce yourselves. We are very friendly. Make sure to include the #LCSM hashtag. |
| Eden Lake @EdenLake @lcsmchat @KimballKristen @VoicesForUS And we all know that our meds, pain, chemo, etc cause brain fog. It can be hard keeping focus long enough to make sure everything gets addressed. A caregiver advocate or just trusted friend can keep things from falling through cracks #lcsm |
| #LCSM Chat @lcsmchat RT @EdenLake: @lcsmchat @KimballKristen @VoicesForUS And we all know that our meds, pain, chemo, etc cause brain fog. It can be hard keeping focus long enough to make sure everything gets addressed. A caregiver advocate or just trusted friend can keep things from falling through cracks #lcsm |
| Mike Thompson, MD, PhD, FASCO @mtmdphd RT @JFreemanDaily: And a reminder to all: And a reminder to all: you can find transcripts of ALL past #LCSM chats on our website at https://t.co/PzmNSvHw9T |
| Janet Freeman-Daily @JFreemanDaily Thanks @TimAllenMDJD for moderating, and for all the great ideas! #LCSM |
| Jill Feldman @jillfeldman4 T3 I realize times up a chat about Language would be a good. What is Respectful, Person first, Stigma-free, Blame free and consistent language. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you for sharing that perspectice, @EdenLake #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @LeciaSequist: @TimAllenMDJD how about a tweet on radiology scan reports now that most patients have access to their scans. So much unnecessary worrying about reporting normal or marginally important things using big words that don’t translate well on google 🙁 #LCSM |
| Eden Lake @EdenLake RT @TimAllenMDJD: A3: A3: How are we going to defeat STIGMA once and for all? #NoStigma #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Agree with @jillfeldman4 #LCSM |
| Christine Garcia, MD, MPH @christinemphmd T3: Lung cancer 101 for patients - what to ask your doctor, what resources are legit, what does x mean?#LCSM |
| Lauren Meehan Machos, MPH @LaurenMachos RT @jillfeldman4: T3 I realize times up a chat about Language would be a good. What is Respectful, Person first, Stigma-free, Blame free and consistent language. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD It has been a privilege to participate, and a great honor to moderate this #LCSM session. |
 | Preventive Medicine Bot @PreventiveBot RT @TimAllenMDJD: A2: A2: Besides physicians, there are lots of folks, even folks behind the scenes, who serve #LungCancer patients and families, including nurses, respiratory therapists, dieticians, nurses, and social services folks. #LCSM |
| Eden Lake @EdenLake RT @1111linno: #lcsm T2 If we really want to understand this ecosystem, we need to listen to what everyone has to say. Top to bottom, inside, outside. Healthy is heard. |
| Preventive Medicine Bot @PreventiveBot RT @TimAllenMDJD: Understanding everyone's perspective provides a powerful view of #lungcancer #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD A transcript for tonight’s #LCSM Chat “Tell Us What You Want – We’re Listening” will be available soon. |
| Preventive Medicine Bot @PreventiveBot RT @TimAllenMDJD: A3: A3: The psychological turmoil of #LungCancer can make diagnosis and treatment feel like a roller coaster ride for patients and their families yet it often goes undiscussed or underdiscussed. Perhaps a topic for the future? #LCSM |
| Sue McCullough @SueMcCu30398663 @EdenLake @lcsmchat @KimballKristen @VoicesForUS #lcsm having somebody to talk to is so important for everybody, social interaction as well! |
| #LCSM Chat @lcsmchat Thank you @TimAllenMDJD for moderating tonight, and @JFreemanDaily for the survey, graphics and blog post. We will be discussing all suggestions. Thanks to everyone for taking the time to complete the survey and/or joining the chat tonight. #LCSM |
| Eden Lake @EdenLake RT @jillfeldman4: T3 I realize times up a chat about Language would be a good. What is Respectful, Person first, Stigma-free, Blame free and consistent language. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 I realize times up a chat about Language would be a good. What is Respectful, Person first, Stigma-free, Blame free and consistent language. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @SueMcCu30398663: @EdenLake @lcsmchat @KimballKristen @VoicesForUS #lcsm having somebody to talk to is so important for everybody, social interaction as well! |
| #LCSM Chat @lcsmchat RT @christinemphmd: T3: T3: Lung cancer 101 for patients - what to ask your doctor, what resources are legit, what does x mean?#LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @lcsmchat: Thank you @TimAllenMDJD for moderating tonight, and @JFreemanDaily for the survey, graphics and blog post. We will be discussing all suggestions. Thanks to everyone for taking the time to complete the survey and/or joining the chat tonight. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: A transcript for tonight’s #LCSM Chat “Tell Us What You Want – We’re Listening” will be available soon. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: Thank you @TimAllenMDJD for moderating tonight, and @JFreemanDaily for the survey, graphics and blog post. We will be discussing all suggestions. Thanks to everyone for taking the time to complete the survey and/or joining the chat tonight. #LCSM |
| Nicole Karapanagiotis, Ph.D. @ProfessorNK @TimAllenMDJD I think the turmoil that surrounds diagnosis and early treatment, especially, can be a good topic. Many here are long timers (that’s great!), but we forget the trauma experienced by early folks who may need the chats the most. Might also tie into to discussions of stigma. #lcsm |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @TimAllenMDJD #LCSM Thank YOU and all the moderators. A lot of great ideas came today. Let’s build up on them. Cumulative efforts by all of us (providers, scientists, patients and caregivers + involved in fighting lung cancer in any capacity) will keep the fight going and successful. |
| #LCSM Chat @lcsmchat RT @ProfessorNK: @TimAllenMDJD I think the turmoil that surrounds diagnosis and early treatment, especially, can be a good topic. Many here are long timers (that’s great!), but we forget the trauma experienced by early folks who may need the chats the most. Might also tie into to discussions of stigma. #lcsm |
| Christine Garcia, MD, MPH @christinemphmd Basically an "Everything you wish you knew about lung cancer (but were afraid to ask)" for patients & caregivers #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: @TimAllenMDJD #LCSM Thank YOU and all the moderators. A lot of great ideas came today. Let’s build up on them. Cumulative efforts by all of us (providers, scientists, patients and caregivers + involved in fighting lung cancer in any capacity) will keep the fight going and successful. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @ProfessorNK: @TimAllenMDJD I think the turmoil that surrounds diagnosis and early treatment, especially, can be a good topic. Many here are long timers (that’s great!), but we forget the trauma experienced by early folks who may need the chats the most. Might also tie into to discussions of stigma. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @christinemphmd: Basically an "Everything you wish you knew about lung cancer (but were afraid to ask)" for patients & caregivers #lcsm |
| Eden Lake @EdenLake @TimAllenMDJD I still find the community I found via #lcsm Twitter chats one of the if not the most valuable resources for me since my diagnosis. I am so happy we are all still here, and I raise a glass tonight to those who aren't. Thank you all. |
| Christine Qiong Wu @wi_qiong @LeciaSequist @TimAllenMDJD Good idea. Canada is going to have the first screening program soon. #lcsm @LeciaSequist @TimAllenMDJD |
 | Marie Wislez @MarieWislez RT @LungCaJournal: 🫁 Just out on @LungCaJournal the article by @DrSteveMartin et al “Pembrolizumab+chemotherapy vs atezolizumab+chemotherapy+/-bevacizumab for the 1L-line treatment of non-squamous NSCLC: a matching-adjusted indirect comparison” #LCSM @OncologyAdvance 👉 https://t.co/jOieoenxZJ |
| Eden Lake @EdenLake RT @christinemphmd: Basically an "Everything you wish you knew about lung cancer (but were afraid to ask)" for patients & caregivers #lcsm |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian # Great #LCSM chat session Thank YOU to everyone who participated. A lot of great ideas today. Let’s build up on them. Cumulative efforts by all of us will keep the fight against #LUNGCANCER going and successful. Thank you @lcsmchat @TimAllenMDJD |
| Eden Lake @EdenLake RT @RManochakian: #LCSM T3: A session on what questions to ask the doctor. Another session on mindfulness and coping with cancer. @lcsmchat |
 | Devika Das, MD, MSHQS @DevikaDasMD @TimAllenMDJD @lcsmchat A1 Continue to have these chats and making sure to address issues/topics that matter to the entire #lcsm community. Including for the population that is not represented on twitter! #advocacy #disparities |
| Bob Steele @steele_bob #lcsm It has been ages since I sat in on LCSM. 2020 was a rough year - started with 50+ day COVID-19 illness. Was sick as as dog. 2021`has started well! |
| Charu Aggarwal, MD, MPH @CharuAggarwalMD @JFreemanDaily @TimAllenMDJD Wonderful chat, tonight @TimAllenMDJD @JFreemanDaily #LCSM |
| kristen kimball @KimballKristen #lcsm thank you @TimAllenMDJD, @JFreemanDaily and @lcsmchat (Deana) for another wonderful chat. I look forward to these every month. <3 |
| Bob Steele @steele_bob #lcsm Look forward to joining in regularly again. Good night folks, and stay well! |
 | Enlightening Results 🇵🇱❤️ 🇺🇦 @GraceCordovano RT @JFreemanDaily: And a reminder to all: And a reminder to all: you can find transcripts of ALL past #LCSM chats on our website at https://t.co/PzmNSvHw9T |
| Devika Das, MD, MSHQS @DevikaDasMD @TimAllenMDJD @lcsmchat A2 Target and invite stakeholder from community and rural practices. Addresses process issues and challenges that could fix #lcsm care delivery nationally/ globally for equity |
 | Evan Hall @EvanHallMD RT @M_Jefford: Pleased to share this paper, a great collaboration! We need to better understand the issues and needs of different groups of survivors - to better prepare, and better support people. #LCSM #survonc #supponc #lungcancer #rarecancers @jcansurv see https://t.co/W9ctwui9dv https://t.co/wtGKzLAvZM |
| Rami Manochakian, MD 🇺🇸🇸🇾 #CancerEducation @RManochakian @EdenLake @TimAllenMDJD Strong community. United against #LungCancer. Cheers. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD It is a privilege to be part of the #LCSM team. Thank you. |
| Devika Das, MD, MSHQS @DevikaDasMD @JFreemanDaily @lcsmchat @TimAllenMDJD A3 Also access to support:resources for patients and practices to build processes related to screening, biomarker testing pathways connecting patients to clinical trials. Building a larger collaborative network that is not bound by academic/ community barriers! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DevikaDasMD: @JFreemanDaily @lcsmchat @TimAllenMDJD A3 Also access to support:resources for patients and practices to build processes related to screening, biomarker testing pathways connecting patients to clinical trials. Building a larger collaborative network that is not bound by academic/ community barriers! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DevikaDasMD: @TimAllenMDJD @lcsmchat A2 Target and invite stakeholder from community and rural practices. Addresses process issues and challenges that could fix #lcsm care delivery nationally/ globally for equity |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DevikaDasMD: @TimAllenMDJD @lcsmchat A1 Continue to have these chats and making sure to address issues/topics that matter to the entire #lcsm community. Including for the population that is not represented on twitter! #advocacy #disparities |
| #LCSM Chat @lcsmchat RT @EdenLake: @TimAllenMDJD I still find the community I found via #lcsm Twitter chats one of the if not the most valuable resources for me since my diagnosis. I am so happy we are all still here, and I raise a glass tonight to those who aren't. Thank you all. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @EdenLake: @TimAllenMDJD I still find the community I found via #lcsm Twitter chats one of the if not the most valuable resources for me since my diagnosis. I am so happy we are all still here, and I raise a glass tonight to those who aren't. Thank you all. |
#LCSM content from Twitter.