#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Brendon Stiles @BrendonStilesMD Hi #lcsm crew! I am excited for tonight’s chat. One of my favorite topics. Nothing moves the needle more for cancer patients than #Research! #lcsm |
| Brendon Stiles @BrendonStilesMD More info about tonight’s chat at https://t.co/Lx9qF406C9 #lcsm |
 | Jean Parks @geekbabe RT @BrendonStilesMD: Hi #lcsm crew! I am excited for tonight’s chat. One of my favorite topics. Nothing moves the needle more for cancer… |
| Brendon Stiles @BrendonStilesMD If you are out there, please tweet #lcsm our way! |
 | #LCSM Chat @lcsmchat RT @BrendonStilesMD: Hi #lcsm crew! I am excited for tonight’s chat. One of my favorite topics. Nothing moves the needle more for cancer… |
| Brendon Stiles @BrendonStilesMD @wi_qiong @lcsmchat Just getting geared up. Please say hello to everyone! #lcsm |
| #LCSM Chat @lcsmchat @wi_qiong @BrendonStilesMD Starting right now. #lcsm |
 | Umberto Malapelle @UmbertoMalapel1 RT @StephenVLiu: #ELCC19 Entrectinib data in #NTRK #NSCLC presented by Luis Paz-Ares - RR 70%, median PFS 14.9 months, intracranial RR 67%!… |
| @polksbc1 RT @livinglife82: Thanks @chrisdraft for an awesome experience to check out the @dallascowboys facilities. The attention to detail shows wh… | |
| Brendon Stiles @BrendonStilesMD You can read about how to participate in the chat at https://t.co/93SziNyHT6 #lcsm |
 | Bob Steele @steele_bob Hi Folks, Bob here in Greensboro, NC. #lcsm |
| Jean Parks @geekbabe Research is why I’m still alive over 4 yrs after a stage IV dx #LCSM |
| @LungCancerFaces Deana in Los Angeles here. I’ll be tweeting from the @lcsmchat account tonight. #lcsm | |
| Brendon Stiles @BrendonStilesMD @steele_bob Hi Bob. Hope all is well. Thanks for joining! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: You can read about how to participate in the chat at https://t.co/93SziNyHT6 #lcsm |
| Brendon Stiles @BrendonStilesMD @geekbabe I love it! Glad you are here. #lcsm |
| Brendon Stiles @BrendonStilesMD We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
 | Deb 🌅 @debsmithbeach Deb here, back in NH after a year of travel all over this amazing continent! Scans next week.... #LCSM |
 | Laura Greco @lgreco_ny Laura here! #lcsm |
| Brendon Stiles @BrendonStilesMD I’m your moderator Brendon Stiles, a thoracic surgeon, patient advocate, and PROUD researcher. #lcsm |
| @LungCancerFaces Hey #LCSM lung cancer people. #LCSM Chat is happening now! Join us. | |
| @dennycee #lcsm Hey! Happy to be here. | |
| Brendon Stiles @BrendonStilesMD @debsmithbeach thanks for joining! #lcsm |
 | Janet Freeman-Daily @JFreemanDaily Sorry I won’t be joining #LCSM Chat tonight—my flight yesterday was cancelled (thanks Denver blizzard) and my airline rebooked me to fly NOW. Have fun talking #Lungcancer research! |
 | Matthew Katz, MD 🇺🇸🟦 @subatomicdoc Good evening! Matt Katz, radiation oncologist. I hope everyone is doing well tonight :-) #lcsm |
| Brendon Stiles @BrendonStilesMD @lgreco_ny Laura!!!! #lcsm |
| Brendon Stiles @BrendonStilesMD @JFreemanDaily We will miss you! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: I’m your moderator Brendon Stiles, a thoracic surgeon, patient advocate, and PROUD researcher. #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Hey #LCSM lung cancer people. #LCSM Chat is happening now! Join us. |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Sorry I won’t be joining #LCSM Chat tonight—my flight yesterday was cancelled (thanks Denver blizzard) and my airline re… |
| Brendon Stiles @BrendonStilesMD @subatomicdoc The one and only! Thanks for joining. #lcsm |
 | Matthew Steliga MD FACS @SteligaMD Hello there. Looking forward to a good discussion. Thank you! #LCSM |
| Brendon Stiles @BrendonStilesMD @NarjustDuma Thanks for joining! #lcsm |
| Brendon Stiles @BrendonStilesMD I would like to disclose conflicts – I chair @lcrf_org & have worked with @astrazeneca & @medtronic. My wife worked @pfizer and now @ppdCRO. These don’t affect opinions expressed tonight. #lcsm |
| Brendon Stiles @BrendonStilesMD In this week’s chat we hope to explore why research matters for #LungCancer patients and how to learn more about it. #lcsm |
 | Paula @lungcancer1964 RT @lcsmchat: TODAY! Education & advocacy are vital, but... “Nothing moves the needle more for lung cancer patients than research.” Join #L… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: I would like to disclose conflicts – I chair @lcrf_org & have worked with @astrazeneca & @medtronic. My wife worked @p… |
| Brendon Stiles @BrendonStilesMD [REDACTED USER] Was hoping you would join! Thanks! #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @BrendonStilesMD Hi Brendon! Glad to join; I've been distracted by #radonc obscure terminology issues. This is much better :-) I hope you're well #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: In this week’s chat we hope to explore why research matters for #LungCancer patients and how to learn more about it. #… |
 | ClaimCompanies.com @claimcompanies RT @JFreemanDaily: Sorry I won’t be joining #LCSM Chat tonight—my flight yesterday was cancelled (thanks Denver blizzard) and my airline re… |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here. #lcsm |
| Brendon Stiles @BrendonStilesMD #Research covers a lot of topics – cancer risk factors, early diagnosis, identifying molecular targets, developing new treatments, and more! #lcsm https://t.co/PUmks8IBrM |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @BrendonStilesMD: In this week’s chat we hope to explore why research matters for #LungCancer patients and how to learn more about it. #… |
| Brendon Stiles @BrendonStilesMD #Research can include basic science, translational science, clinical studies, and population health. #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @TimAllenMDJD Hi Tim! Good to see you :-) #lcsm |
| Brendon Stiles @BrendonStilesMD We will get started soon. First, a few reminders…#lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: #Research can include basic science, translational science, clinical studies, and population health. #lcsm |
| Brendon Stiles @BrendonStilesMD Please remember to include #LCSM in ALL your tweets so the other chat participants will see them during the chat #lcsm |
 | Devika Das, MD, MSHQS @DevikaDasMD @BrendonStilesMD @lcsmchat Deep South , academic VA medical oncologist interested in equity to research access #lcsm |
| Brendon Stiles @BrendonStilesMD If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD @subatomicdoc Back atcha, @subatomicdoc! #lcsm |
| Brendon Stiles @BrendonStilesMD I will announce FIVE topics (T1 T2 etc). Please label your responses with T1, T2, etc to make transcript easier to follow. #lcsm |
| Brendon Stiles @BrendonStilesMD We’ll start with Topic T1 in a minute. Great to have such a diverse group here! Thanks to everyone for joining. #lcsm https://t.co/A1HbOLZ7MO |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: In this week’s chat we hope to explore why research matters for #LungCancer patients and how to learn more about it. #… |
| Bob Steele @steele_bob RT @BrendonStilesMD: We’ll start with Topic T1 in a minute. Great to have such a diverse group here! Thanks to everyone for joining. #lcsm… |
| Brendon Stiles @BrendonStilesMD @DevikaDasMD @lcsmchat Thanks for joining. #lcsm |
| Brendon Stiles @BrendonStilesMD T1. Is research just for future patients, or do current patients also benefit? #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @BrendonStilesMD: We’ll start with Topic T1 in a minute. Great to have such a diverse group here! Thanks to everyone for joining. #lcsm… |
| Brendon Stiles @BrendonStilesMD T1. I believe current patients can benefit. The rapid pace of progress in lung cancer brings new drugs to the clinic at a remarkable pace. #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @NarjustDuma @JFreemanDaily Definitely will miss you. Safe travels! #lcsm |
| Brendon Stiles @BrendonStilesMD T1. EGFR-, ALK-, ROS1-, BRAF-, MET-, NTRK-based drugs are great examples. So is immunotherapy. #lcsm |
 | Laronica Conway @louisianagirl91 RT @BrendonStilesMD: #Research covers a lot of topics – cancer risk factors, early diagnosis, identifying molecular targets, developing new… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. I believe current patients can benefit. The rapid pace of progress in lung cancer brings new drugs to the clinic… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. EGFR-, ALK-, ROS1-, BRAF-, MET-, NTRK-based drugs are great examples. So is immunotherapy. #lcsm |
| Brendon Stiles @BrendonStilesMD T1. That is how we got from platinum based chemo for all to this….(from [REDACTED USER]) #lcsm https://t.co/nLAaZc31C5 |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @BrendonStilesMD T1. Research helps us learn what works. Depend upon the type of research, it also helps current patients #lcsm |
| Jean Parks @geekbabe @BrendonStilesMD Yeah immunotherapy, @annaffarago & @MGHCancerCenter keeping me going! #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @subatomicdoc: @BrendonStilesMD T1. Research helps us learn what works. Depend upon the type of research, it also helps current patients… |
| Brendon Stiles @BrendonStilesMD T1. A previous study suggested that a government backed research collaboration (SWOG) started in1950’s added 3.34 MILLION years of life for cancer patients! #lcsm |
| #LCSM Chat @lcsmchat RT @subatomicdoc: @BrendonStilesMD T1. Research helps us learn what works. Depend upon the type of research, it also helps current patients… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T1. That is how we got from platinum based chemo for all to this….(from [REDACTED USER]) #lcsm https://t.co/nLAaZc31C5 |
| Laronica Conway @louisianagirl91 @BrendonStilesMD @lcsmchat Dr. B! It’s Laronica in Birmingham! 😘👋🏾 I’m here kinda...multitasking! #lcsm |
| Matthew Steliga MD FACS @SteligaMD T1 I think that many patients who participate in clinical trials do benefit. They may receive treatment otherwise unavailable, and often undergo more rigorous surveillance/scrutiny which could benefit them. #LCSM |
| #LCSM Chat @lcsmchat RT @geekbabe: @BrendonStilesMD Yeah immunotherapy, @annaffarago & @MGHCancerCenter keeping me going! #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. A previous study suggested that a government backed research collaboration (SWOG) started in1950’s added 3.34 MIL… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T1. A previous study suggested that a government backed research collaboration (SWOG) started in1950’s added 3.34 MIL… |
| Brendon Stiles @BrendonStilesMD T1. 3.34 million years of life at an estimated cost of $125 for each year of life! https://t.co/HSfiklE65P #lcsm |
| Brendon Stiles @BrendonStilesMD [REDACTED USER] @lcsmchat @wi_qiong Wise choice! #lcsm |
| Brendon Stiles @BrendonStilesMD @louisianagirl91 @lcsmchat Always love having you! #lcsm |
| Jean Parks @geekbabe 4 yrs covers a lot of birthdays, weddings & graduations #LCSM https://t.co/RhIY3lGubj |
| Brendon Stiles @BrendonStilesMD T1. Everyone can benefit from research. But some clinical trials are set up so that patients get “placebo” or standard of care. #lcsm |
 | Narjust Florez, MD, FASCO @NarjustFlorezMD @BrendonStilesMD @lcsmchat [REDACTED USER] T1: Love this illustration! #lcsm |
| Brendon Stiles @BrendonStilesMD T1. Clinical and population science research are critical for understanding trends in treatment and for quality control. It helps everyone! #lcsm |
| Jean Parks @geekbabe Research gave me the beach #LCSM https://t.co/uJDeeiklVC |
| Brendon Stiles @BrendonStilesMD [REDACTED USER] True...the crux of the situation. #lcsm |
| Brendon Stiles @BrendonStilesMD T1. A patient (who has become a close friend) got diagnosed with #ALKPositive cancer and >20 brain mets the same month a new drug was approved with better brain efficacy. He is still going strong. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. Clinical and population science research are critical for understanding trends in treatment and for quality contr… |
| Bob Steele @steele_bob RT @BrendonStilesMD: T1. A patient (who has become a close friend) got diagnosed with #ALKPositive cancer and >20 brain mets the same mont… |
| Brendon Stiles @BrendonStilesMD T1. Good summary from @NCI on return on investment of cancer research: https://t.co/1eMGoy4P1Z #lcsm |
 | Christian Rolfo @ChristianRolfo #OncoAlert #LCSM |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @geekbabe: Research gave me the beach #LCSM https://t.co/uJDeeiklVC |
| Brendon Stiles @BrendonStilesMD @NarjustDuma @lcsmchat Could not agree more. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. A patient (who has become a close friend) got diagnosed with #ALKPositive cancer and >20 brain mets the same mont… |
| Laura Greco @lgreco_ny t1: most of the long term survivors I know are alive because of clinical trials. Even though they may "fail" from a commercial/scientific aspect they can buy patient more time. #lcsm |
| Devika Das, MD, MSHQS @DevikaDasMD @BrendonStilesMD [REDACTED USER] Saving this for teaching fellows #lcsm |
 | MaryAnn Brown @MARYANNBROWNMFT RT @geekbabe: @BrendonStilesMD Yeah immunotherapy, @annaffarago & @MGHCancerCenter keeping me going! #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. Good summary from @NCI on return on investment of cancer research: https://t.co/1eMGoy4P1Z #lcsm |
 | Kathleen Skambis @KathleenSkambis #lcsm late |
| Jean Parks @geekbabe I visited @MGHCancerCenter lung cancer research lab #LCSM https://t.co/5ICV9RNfwu |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @BrendonStilesMD [REDACTED USER] @lcsmchat @wi_qiong Definitely! Good to see you Ian! #lcsm |
| Brendon Stiles @BrendonStilesMD T1. Voters want more research! Tell your elected representatives. From @AACR survey. #lcsm https://t.co/Xotv5CRKqy |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @BrendonStilesMD: T1. Good summary from @NCI on return on investment of cancer research: https://t.co/1eMGoy4P1Z #lcsm |
| Brendon Stiles @BrendonStilesMD T2 coming.... #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T1. Voters want more research! Tell your elected representatives. From @AACR survey. #lcsm https://t.co/Xotv5CRKqy |
| Brendon Stiles @BrendonStilesMD T2. In what areas is more research most needed for lung cancer?#lcsm |
| Jean Parks @geekbabe Research meant seeing a 1st great grandchild #LCSM https://t.co/hLpyH1eYxF |
| Laura Greco @lgreco_ny @BrendonStilesMD @AACR T1: Lung cancer research unfortunately gets short changed at the federal level. We need to emphasize how it makes monetary sense to tackle lung cancer. #lcsm |
| Deb 🌅 @debsmithbeach T1. I've been in 3 clinical trials so far and 2/3 have benifitted me significantly! Happy to help future patients, thrilled to have extended my life! I've been on Tagrisso for 5 1/2 yrs, first in a trial. #LCSM |
| Brendon Stiles @BrendonStilesMD T2. Geez…I can think of about 1,000 things we need to study more! #lcsm https://t.co/T0nXag4EaN |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. In what areas is more research most needed for lung cancer?#lcsm |
| Brendon Stiles @BrendonStilesMD @geekbabe @MGHCancerCenter This is great. I will suggest later! #lcsm |
| Jean Parks @geekbabe RT @BrendonStilesMD: T1. A patient (who has become a close friend) got diagnosed with #ALKPositive cancer and >20 brain mets the same mont… |
| Brendon Stiles @BrendonStilesMD T2. We need to understand why so many patients develop resistance to drugs that initially work. #lcsm https://t.co/hSuGu1OjYm |
| MaryAnn Brown @MARYANNBROWNMFT RT @BrendonStilesMD: T1. That is how we got from platinum based chemo for all to this….(from [REDACTED USER]) #lcsm https://t.co/nLAaZc31C5 |
 | Kristin Ito @KAdvocate_LCAM @BrendonStilesMD Tough question...it all does! But one area in need is, small cell #LCSM |
| Laura Greco @lgreco_ny Me too... almost better question is what don't we need to study more! #lcsm |
 | Frank Ingram, MD @Chucktowndoc Ingram joining a little late. Pathologist from NC. #lcsm |
| Jean Parks @geekbabe Research can give patients the gift of time #LCSM https://t.co/9PjchIbEnL |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD 2d that @BrendonStilesMD #lcsm |
| Bob Steele @steele_bob RT @TimAllenMDJD: 2d that @BrendonStilesMD #lcsm https://t.co/45XzPyK7Sc |
| Brendon Stiles @BrendonStilesMD T2. We need to figure out who is at risk for lung cancer, particularly among never smokers. Data from us @WeillCornell @MeyerCancer #lcsm https://t.co/mJBP6TbZ6F |
| Jean Parks @geekbabe RT @BrendonStilesMD: T1. A previous study suggested that a government backed research collaboration (SWOG) started in1950’s added 3.34 MIL… |
 | Percy Lee MD @PercyLeeMD Practice changing paradigm. #sabr stereotactic ablative radiotherapy for oligometaststic disease state #lcsm #pcsm #bcsm #radonc |
| Brendon Stiles @BrendonStilesMD T2. We need to get a better handle on genetic susceptibility to lung cancer. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. In what areas is more research most needed for lung cancer?#lcsm |
| Brendon Stiles @BrendonStilesMD @Chucktowndoc Thanks for joining! #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @BrendonStilesMD @AACR T1: Lung cancer research unfortunately gets short changed at the federal level. We need to emphasize… |
| Laura Greco @lgreco_ny @BrendonStilesMD Yes! We get these fantastic results with TKIs... how lovely would it be if they lasted! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. We need to figure out who is at risk for lung cancer, particularly among never smokers. Data from us @WeillCornel… |
| #LCSM Chat @lcsmchat RT @debsmithbeach: T1. I've been in 3 clinical trials so far and 2/3 have benifitted me significantly! Happy to help future patients, thril… |
| Brendon Stiles @BrendonStilesMD T2. We need clinical and population health studies to figure out why physicians are doing such a terrible job screening at risk patients for lung cancer! #lcsm |
 | Loza @MayteMirellaCL Each day, Dr. Cathy Pietanza is #InventingForLife and helping to improve the outlook for #lungcancer patients: mercurio us/2CyJZeB #AACR19 #LCSM |
| MaryAnn Brown @MARYANNBROWNMFT @lcsmchat #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. We need to understand why so many patients develop resistance to drugs that initially work. #lcsm https://t.co/hS… |
| Jean Parks @geekbabe RT @BrendonStilesMD: You can read about how to participate in the chat at https://t.co/93SziNyHT6 #lcsm |
| Brendon Stiles @BrendonStilesMD T2. We need to better understand sequencing of therapy and figure out how to move targeted therapy into earlier stages. This from @JTOonline. #lcsm https://t.co/K8Sw8JaeOi |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @BrendonStilesMD Tough question...it all does! But one area in need is, small cell #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. We need to figure out who is at risk for lung cancer, particularly among never smokers. Data from us @WeillCornel… |
| Percy Lee MD @PercyLeeMD @BrendonStilesMD T1: In a randomized study the standard treatment arm is what patients should receive as state of the art care. Under the watch of a study the quality of care should also be top notch due to extensive independent oversight #lcsm |
 | Aparna Hegde, MD @notahedge T2: We need to improve outcomes for non-metastic NSCLC. Need screening and timely adjuvant studies. #lcsm |
| Brendon Stiles @BrendonStilesMD T2. We need to better describe patient reported outcomes and side effects. #lcsm |
| Devika Das, MD, MSHQS @DevikaDasMD @BrendonStilesMD T2 real world impact of clinical trials , boardly inclusive clinical trials ( brain Mets etc) , racial and socioeconomic disparities in lung cancer care, #lcsm besides all areas of lung cancer need more funding , dismal compared to certain other tumor types |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. We need to get a better handle on genetic susceptibility to lung cancer. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #JustMolecularChanges #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @BrendonStilesMD Yes! We get these fantastic results with TKIs... how lovely would it be if they lasted! #lcsm |
| Devika Das, MD, MSHQS @DevikaDasMD RT @DevikaDasMD: @BrendonStilesMD T2 real world impact of clinical trials , boardly inclusive clinical trials ( brain Mets etc) , racial an… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @JonJKruse @gdhugo @SBRT_CR @SeanSachdevMD @KimpleRandall @PercyLeeMD @DrChowdharyMD @BrendonStilesMD [REDACTED USER] @NicholasZaorsky @AshleyAlbertMD [REDACTED USER] [REDACTED USER] [REDACTED USER] [REDACTED USER] @BK_radiation @UCLAHealth I wish I had more time for #lcsm and other chats. I learn a great deal that informs me on being a better cancer doctor. |
| Jean Parks @geekbabe I participate in every study offered to me. Because... it’s science! #LCSM |
| Brendon Stiles @BrendonStilesMD T2. We also need to understand financial toxicity of cancer care today and how that impacts patients and caregivers. #lcsm https://t.co/1Rj1lAuMTj |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. We need to better understand sequencing of therapy and figure out how to move targeted therapy into earlier stage… |
| #LCSM Chat @lcsmchat RT @PercyLeeMD: @BrendonStilesMD T1: In a randomized study the standard treatment arm is what patients should receive as state of the art c… |
| #LCSM Chat @lcsmchat RT @notahedge: T2: We need to improve outcomes for non-metastic NSCLC. Need screening and timely adjuvant studies. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #PatientsFirst #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. We need to better describe patient reported outcomes and side effects. #lcsm |
| #LCSM Chat @lcsmchat RT @DevikaDasMD: @BrendonStilesMD T2 real world impact of clinical trials , boardly inclusive clinical trials ( brain Mets etc) , racial an… |
| Brendon Stiles @BrendonStilesMD @notahedge Could not agree more! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T2. We also need to understand financial toxicity of cancer care today and how that impacts patients and caregivers.… |
 | Liz Johnson @wired4story RT @BrendonStilesMD: T2. We also need to understand financial toxicity of cancer care today and how that impacts patients and caregivers.… |
| Laura Greco @lgreco_ny Yes! And how about a test that could be generally administered to catch cancer earlier? #lcsm |
| #LCSM Chat @lcsmchat RT @geekbabe: I participate in every study offered to me. Because... it’s science! #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. We also need to understand financial toxicity of cancer care today and how that impacts patients and caregivers.… |
| Aparna Hegde, MD @notahedge This 👇. Can we achieve what we've done for breast cancer. |
| #LCSM Chat @lcsmchat RT @lgreco_ny: Yes! And how about a test that could be generally administered to catch cancer earlier? #lcsm https://t.co/4rUjlCn5YT |
| Kathleen Skambis @KathleenSkambis @BrendonStilesMD Huge issue for those of us with family history—how to protect our kids |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @BrendonStilesMD: T2. We also need to understand financial toxicity of cancer care today and how that impacts patients and caregivers.… |
| Brendon Stiles @BrendonStilesMD T2. We have to figure out how to diagnose, test, and treat lung cancer better in rural communities. #NoDisparities #lcsm https://t.co/d4xxuSHFk4 |
| Kristin Ito @KAdvocate_LCAM @BrendonStilesMD This is HUGE! #LCSM |
| Bob Steele @steele_bob Paying it Forward is one of the benefits/effects of Clinical Trial participation #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. We have to figure out how to diagnose, test, and treat lung cancer better in rural communities. #NoDisparities #l… |
| Jean Parks @geekbabe @BrendonStilesMD My mom died of lung cancer & I didn’t know what that meant in terms of risk till I got sick #LCSM |
| #LCSM Chat @lcsmchat RT @steele_bob: Paying it Forward is one of the benefits/effects of Clinical Trial participation #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @lgreco_ny: Yes! And how about a test that could be generally administered to catch cancer earlier? #lcsm https://t.co/4rUjlCn5YT |
| Brendon Stiles @BrendonStilesMD T2. And we need to discover new targets. In many patients the “drivers” are still unknown. #lcsm https://t.co/qtA3cXNkwJ |
| Brendon Stiles @BrendonStilesMD RT @steele_bob: Paying it Forward is one of the benefits/effects of Clinical Trial participation #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #Telemedicine #Telehealth #lcsm |
| Jean Parks @geekbabe RT @PercyLeeMD: @BrendonStilesMD T1: In a randomized study the standard treatment arm is what patients should receive as state of the art c… |
| Laronica Conway @louisianagirl91 RT @steele_bob: Paying it Forward is one of the benefits/effects of Clinical Trial participation #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T2. And we need to discover new targets. In many patients the “drivers” are still unknown. #lcsm https://t.co/qtA3cX… |
| Brendon Stiles @BrendonStilesMD T3 on the way.... #lcsm |
| Bob Steele @steele_bob This is such a huge issue. It has impacted friends and family members... |
| Brendon Stiles @BrendonStilesMD T3. What can researchers do to make their work more accessible to patients and advocates? #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @BrendonStilesMD: T2. We have to figure out how to diagnose, test, and treat lung cancer better in rural communities. #NoDisparities #l… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #DarkSideOfTheMoon #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. What can researchers do to make their work more accessible to patients and advocates? #lcsm |
| Brendon Stiles @BrendonStilesMD T3. First step is to always remember that patients are the reason we do all of this! Doctors should advocate for the diseases they treat. #lcsm |
| Kathleen Skambis @KathleenSkambis RT @BrendonStilesMD: T3. What can researchers do to make their work more accessible to patients and advocates? #lcsm |
 | Ageya Achili Diglihi @FriendsOfPipe RT @BrendonStilesMD: T2. We have to figure out how to diagnose, test, and treat lung cancer better in rural communities. #NoDisparities #l… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @BrendonStilesMD T2. I agree. We need to do a better job meeting the needs of all patients #lcsm |
| Jean Parks @geekbabe @steele_bob Knowing the researchers get info from all the blood they take from me to help others is an honor #LCSM |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @BrendonStilesMD: T3. What can researchers do to make their work more accessible to patients and advocates? #lcsm |
| Kristin Ito @KAdvocate_LCAM @BrendonStilesMD Create digestible summary slides whenever they present at conferences! #LCSM |
| Brendon Stiles @BrendonStilesMD T3. Researchers should join Twitter or other #SoMe platforms. Share your work. Explain it. Tell us why it is important. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #PatientsFirst #lcsm |
| Aparna Hegde, MD @notahedge T2: Biomarkers for screening, risk stratification in adjuvant setting, for use of IO and predicting iRAEs. So much to do. Need more funding and collaborative work. #lcsm |
| Brendon Stiles @BrendonStilesMD @KAdvocate_LCAM This is key! #lcsm |
 | Dr. Miriam Knoll @MKnoll_MD RT @BrendonStilesMD: In this week’s chat we hope to explore why research matters for #LungCancer patients and how to learn more about it. #… |
| Bob Steele @steele_bob RT @notahedge: T2: Biomarkers for screening, risk stratification in adjuvant setting, for use of IO and predicting iRAEs. So much to do. Ne… |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @BrendonStilesMD Create digestible summary slides whenever they present at conferences! #LCSM |
| #LCSM Chat @lcsmchat RT @notahedge: T2: Biomarkers for screening, risk stratification in adjuvant setting, for use of IO and predicting iRAEs. So much to do. Ne… |
| Brendon Stiles @BrendonStilesMD T3. I love this from @SurvivorNetTeam. Jim Allison explaining immunotherapy for patients. https://t.co/s5uT7NMTRw If a Nobel Prize winner can take the time, why can’t we all? #lcsm |
| Bob Steele @steele_bob RT @BrendonStilesMD: T3. I love this from @SurvivorNetTeam. Jim Allison explaining immunotherapy for patients. https://t.co/s5uT7NMTRw… |
| Jean Parks @geekbabe So many patients are afraid of even simple clinical trials, even blood draw studies #LCSM |
| Laura Greco @lgreco_ny So important in lung cancer in particular, as there are too few survivors, and many too sick (or too stigmatized) to really make a dent in advocacy need. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. I love this from @SurvivorNetTeam. Jim Allison explaining immunotherapy for patients. https://t.co/s5uT7NMTRw… |
| Brendon Stiles @BrendonStilesMD T3. For scientific manuscripts, visual abstracts are awesome and easy to disseminate. #lcsm https://t.co/Z9Ld0yEKok |
| Jean Parks @geekbabe RT @BrendonStilesMD: T2. We have to figure out how to diagnose, test, and treat lung cancer better in rural communities. #NoDisparities #l… |
 | Samuel Chao @SamuelChaoMD RT @JAMAOnc: BEWARE of high risk of combination of anti-angiogenic agents w SBRT to “ultra-central” chest tumors abutting proximal bronchia… |
| Jean Parks @geekbabe RT @BrendonStilesMD: T2. We also need to understand financial toxicity of cancer care today and how that impacts patients and caregivers.… |
| Brendon Stiles @BrendonStilesMD T3. Bring patients to your labs or to research days. #lcsm |
| Brendon Stiles @BrendonStilesMD @geekbabe This is a failure on researchers part! #lcsm |
| Kathleen Skambis @KathleenSkambis T3. In addition to costs of treatment, trial costs of note to patients include simple things, like parking costs. #lcsm |
| Brendon Stiles @BrendonStilesMD T3. When we had a #FreeToBreathe @lcrf_org lab tour, both patients and researchers learned from each other! #lcsm https://t.co/BAQmFrvxIn |
| Kristin Ito @KAdvocate_LCAM @BrendonStilesMD Also...think about including patient advocates in review process for patient related surveys. #LCSM |
| Laura Greco @lgreco_ny t3 how about making scientific articles actually available online instead of through paywall? #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: So important in lung cancer in particular, as there are too few survivors, and many too sick (or too stigmatized) to really… |
| Jean Parks @geekbabe @BrendonStilesMD Yeah, I’m still working but at greatly reduced income. Cancer costs $, energy & lives #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. Bring patients to your labs or to research days. #lcsm |
| Brendon Stiles @BrendonStilesMD T3. This is a great video by the way – how patients help researchers and why you need to Make Noise! #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T3. In addition to costs of treatment, trial costs of note to patients include simple things, like parking costs. #lc… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. When we had a #FreeToBreathe @lcrf_org lab tour, both patients and researchers learned from each other! #lcsm ht… |
| @dennycee Education. I still see pts who believe clinical trials are only last resort. Concept of chemo naive not in radar. #lcsm | |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @BrendonStilesMD Also...think about including patient advocates in review process for patient related surveys. #LCSM |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @BrendonStilesMD T3. I agree for academics. It's different for generalists like me. I do try to advocate for all my patients, but it differs from more specialized oncology professionals. It still may be disease-specific but different strategies for advocacy #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: t3 how about making scientific articles actually available online instead of through paywall? #lcsm |
| Brendon Stiles @BrendonStilesMD T3. I love it when groups - @lcrf_org, @LUNGevity, @theALCF, @lcaorg – bring patients, advocates, and researchers together. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. This is a great video by the way – how patients help researchers and why you need to Make Noise! #lcsm |
 | Anita Figueras @scifiknitter Anita from northern NY joining late. A cofounder of the EGFR Resisters, which has 2 active patient-driven research projects. #LCSM |
| Brendon Stiles @BrendonStilesMD @KAdvocate_LCAM More on this later! #lcsm |
| #LCSM Chat @lcsmchat RT @subatomicdoc: @BrendonStilesMD T3. I agree for academics. It's different for generalists like me. I do try to advocate for all my pati… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. I love it when groups - @lcrf_org, @LUNGevity, @theALCF, @lcaorg – bring patients, advocates, and researchers tog… |
| Anita Figueras @scifiknitter RT @BrendonStilesMD: T3. I love this from @SurvivorNetTeam. Jim Allison explaining immunotherapy for patients. https://t.co/s5uT7NMTRw… |
| Laura Greco @lgreco_ny t3 Fund scholarships so patients can go to medical conferences. Getting a scholarship can feel like winning the lotto because it is so rare. #lcsm |
| Brendon Stiles @BrendonStilesMD T3. Pushing for open access publication is key. Journals could do better sharing content. From @PLOSONE https://t.co/We2J5mqJe8 #lcsm |
| Aparna Hegde, MD @notahedge T3: so much can be done. 1.Share your work on #SoMe 2.Engage patient advocates when designing trials. 3.Large professional organizations should make conferences more accessible to patients and caregivers. 4.Important papers behind paywalls- this one is the toughest. #lcsm |
| Kristin Ito @KAdvocate_LCAM @BrendonStilesMD @lcrf_org @LUNGevity @TheALCF @LCAorg Yes! Each group brings a unique expertise! #LCSM |
 | Kimberley H Geissler @khgeissler @lgreco_ny Many researchers happy to share if you email them for a copy. Researchers, respond to these requests!! #lcsm |
| Brendon Stiles @BrendonStilesMD [REDACTED USER] We definitely need a strong voice in this space. #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: t3 Fund scholarships so patients can go to medical conferences. Getting a scholarship can feel like winning the lotto becau… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T3. Pushing for open access publication is key. Journals could do better sharing content. From @PLOSONE https://t.c… |
| #LCSM Chat @lcsmchat RT @notahedge: T3: so much can be done. 1.Share your work on #SoMe 2.Engage patient advocates when designing trials. 3.Large professional… |
| Jean Parks @geekbabe @BrendonStilesMD @MGHCancerCenter The tour was amazing! I even met Dr Alice Shaw #LCSM https://t.co/8oVln1zn7c |
| #LCSM Chat @lcsmchat RT @khgeissler: @lgreco_ny Many researchers happy to share if you email them for a copy. Researchers, respond to these requests!! #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @notahedge: T3: so much can be done. 1.Share your work on #SoMe 2.Engage patient advocates when designing trials. 3.Large professional… |
| Brendon Stiles @BrendonStilesMD @lgreco_ny Yes!From @PLOSONE https://t.co/We2J5mqJe8 #lcsm |
| Laura Greco @lgreco_ny Involve patients in decisions on what research to fund, even internally. #lcsm |
| Bob Steele @steele_bob Absolutely agree Laura! This is a high priority issue! |
| #LCSM Chat @lcsmchat RT @lgreco_ny: Involve patients in decisions on what research to fund, even internally. #lcsm https://t.co/utxNTy8Xbf |
| Brendon Stiles @BrendonStilesMD @khgeissler @lgreco_ny This is definitely true. Don't hesitate to ask and also ask what they think is important about the research! #lcsm |
| Kathleen Skambis @KathleenSkambis T3: lawyers have pubs that publish annual surveys of important cases in key areas. Do researchers/oncologists do this? If so, help make them accessible to patients. #lcsm |
| Laura Greco @lgreco_ny If you can find their email address....and many patients are very hesitant to email a doctor. #lcsm |
| Brendon Stiles @BrendonStilesMD @lgreco_ny My sense is that we are getting better at this. But more to do. #lcsm |
| Anita Figueras @scifiknitter @KAdvocate_LCAM @BrendonStilesMD Include patients in the design of surveys, not just in the review. We can write valid and understandable questions. #lcsm |
 | Geoff Hugo @gdhugo @BrendonStilesMD T3. Listen to them. Best part of our dept. retreat is the patient invited to share their experience each year. Helps us non-physicians prioritize and focus our work on what’s important to the patient. #lcsm |
| Brendon Stiles @BrendonStilesMD @EdenLake Thanks for being here! #lcsm |
 | Lung Cancer #1 cancer killer of women @VirginiaMByrne #LCSM |
| Aparna Hegde, MD @notahedge RT @scifiknitter: @KAdvocate_LCAM @BrendonStilesMD Include patients in the design of surveys, not just in the review. We can write valid an… |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T3: lawyers have pubs that publish annual surveys of important cases in key areas. Do researchers/oncologists do this?… |
| Jean Parks @geekbabe Lung cancer patients... we do matter! Research is vital #LCSM https://t.co/IL7xVEAzM8 |
| Kristin Ito @KAdvocate_LCAM @scifiknitter @BrendonStilesMD Absolutely agree! #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: If you can find their email address....and many patients are very hesitant to email a doctor. #lcsm https://t.co/Zu1yYGeA3q |
| Anita Figueras @scifiknitter RT @dennycee: Education. I still see pts who believe clinical trials are only last resort. Concept of chemo naive not in radar. #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: @KAdvocate_LCAM @BrendonStilesMD Include patients in the design of surveys, not just in the review. We can write valid an… |
| #LCSM Chat @lcsmchat RT @gdhugo: @BrendonStilesMD T3. Listen to them. Best part of our dept. retreat is the patient invited to share their experience each year.… |
| Laura Greco @lgreco_ny Yes! All of this and more! #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @gdhugo: @BrendonStilesMD T3. Listen to them. Best part of our dept. retreat is the patient invited to share their experience each year.… |
| Brendon Stiles @BrendonStilesMD Rolling onto T4 in another few minutes... #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: Yes! All of this and more! #lcsm https://t.co/aoL8N76Bdd |
| Kimberley H Geissler @khgeissler @lgreco_ny Agree on all points, although generally corresponding author's email is listed with the abstract so may be easier to find. (This is obviously a bandaid, not a good solution to the problem of paywalled research!) #lcsm |
| Jean Parks @geekbabe RT @gdhugo: @BrendonStilesMD T3. Listen to them. Best part of our dept. retreat is the patient invited to share their experience each year.… |
| Jean Parks @geekbabe RT @scifiknitter: @KAdvocate_LCAM @BrendonStilesMD Include patients in the design of surveys, not just in the review. We can write valid an… |
| Jean Parks @geekbabe RT @lgreco_ny: If you can find their email address....and many patients are very hesitant to email a doctor. #lcsm https://t.co/Zu1yYGeA3q |
| Aparna Hegde, MD @notahedge RT @BrendonStilesMD: T3. I love it when groups - @lcrf_org, @LUNGevity, @theALCF, @lcaorg – bring patients, advocates, and researchers tog… |
| @mcquadeMDLAc Very important study showing benefit of Stereotactic radioablation in oligometastatic cancer. Congrats to the investigators on conducting a randomized trial to address this question! | |
| Kristin Ito @KAdvocate_LCAM @wi_qiong @BrendonStilesMD @PLOSONE IASLC offers complimentary membership to patients/survivors and caregivers, which provides (free) online access to the JTO. #LCSM |
| Anita Figueras @scifiknitter RT @lgreco_ny: Yes! All of this and more! #lcsm https://t.co/aoL8N76Bdd |
| Aparna Hegde, MD @notahedge RT @KAdvocate_LCAM: @wi_qiong @BrendonStilesMD @PLOSONE IASLC offers complimentary membership to patients/survivors and caregivers, which p… |
| Bob Steele @steele_bob RT @KAdvocate_LCAM: @wi_qiong @BrendonStilesMD @PLOSONE IASLC offers complimentary membership to patients/survivors and caregivers, which p… |
| Brendon Stiles @BrendonStilesMD T4. What is the @IASLC STARS program and why are programs that train patients and advocates important? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KAdvocate_LCAM: @wi_qiong @BrendonStilesMD @PLOSONE IASLC offers complimentary membership to patients/survivors and caregivers, which p… |
| #LCSM Chat @lcsmchat RT @khgeissler: @lgreco_ny Agree on all points, although generally corresponding author's email is listed with the abstract so may be easie… |
 | OncLive.com @OncLive PROs according to PD-L1 expression did not show clinically meaningful differences in QoL with either durvalumab or placebo in patients with stage III NSCLC who have not progressed following chemoradiotherapy #ELCC19 #lcsm https://t.co/335o5TDPS8 |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @wi_qiong @BrendonStilesMD @PLOSONE IASLC offers complimentary membership to patients/survivors and caregivers, which p… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. What is the @IASLC STARS program and why are programs that train patients and advocates important? #lcsm |
| Jean Parks @geekbabe My Oncologist says not all patients are as involved in following the science as I am, this needs to change #LCSM |
| Brendon Stiles @BrendonStilesMD T4. It stands for Supportive Training for Advocates on Research and Science (STARS). Great concept, right?!?! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T4. What is the @IASLC STARS program and why are programs that train patients and advocates important? #lcsm |
| Laura Greco @lgreco_ny @KAdvocate_LCAM @wi_qiong @BrendonStilesMD @PLOSONE @IASLC really is a leader in this regard! #lcsm |
| Matthew Steliga MD FACS @SteligaMD t3: We have a research open house type event @uamscancer for community supporters- where researchers have posters but also lay summaries with each one. It’s really well received. A lay summary of key findings can demystify the research and open doors for understanding. #LCSM |
| Brendon Stiles @BrendonStilesMD T4. Here is a great link describing the program. https://t.co/pdvLflndTr #lcsm |
| Bob Steele @steele_bob RT @SteligaMD: t3: We have a research open house type event @uamscancer for community supporters- where researchers have posters but also l… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @SteligaMD: t3: We have a research open house type event @uamscancer for community supporters- where researchers have posters but also l… |
| Aparna Hegde, MD @notahedge RT @SteligaMD: t3: We have a research open house type event @uamscancer for community supporters- where researchers have posters but also l… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. It stands for Supportive Training for Advocates on Research and Science (STARS). Great concept, right?!?! #lcsm |
| Bob Steele @steele_bob RT @BrendonStilesMD: T4. Here is a great link describing the program. https://t.co/pdvLflndTr #lcsm |
| Jean Parks @geekbabe RT @BrendonStilesMD: T4. Here is a great link describing the program. https://t.co/pdvLflndTr #lcsm |
| Brendon Stiles @BrendonStilesMD @lgreco_ny T4. I give lots of credit to @iaslc for recognizing the need to better train advocates and patients on research and science! #lcsm |
| Liz Johnson @wired4story @notahedge Yes! This precisely! #lcsm #bcsm |
| Kristin Ito @KAdvocate_LCAM @BrendonStilesMD @IASLC Many patients are eager to learn beyond their diagnosis and advocate for the lung cancer community as a whole! #LCSM |
| Brendon Stiles @BrendonStilesMD T4. Some goals: Educate about scientific process and how to read and interpret research articles. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Absolutely #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @KAdvocate_LCAM @wi_qiong @BrendonStilesMD @PLOSONE @IASLC really is a leader in this regard! #lcsm |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne T3 #lcsm I just had the honor of touring Aaron Hata's lab at MGH. My eyes were opened! |
| Kristin Ito @KAdvocate_LCAM RT @lgreco_ny: @KAdvocate_LCAM @wi_qiong @BrendonStilesMD @PLOSONE @IASLC really is a leader in this regard! #lcsm |
| #LCSM Chat @lcsmchat RT @SteligaMD: t3: We have a research open house type event @uamscancer for community supporters- where researchers have posters but also l… |
| Brendon Stiles @BrendonStilesMD T4. Goal: Teaching patients/advocates to communicate importance of lung cancer science and research. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. Here is a great link describing the program. https://t.co/pdvLflndTr #lcsm |
| Brendon Stiles @BrendonStilesMD T4. Important because we HAVE to have most important stakeholders – PATIENTS – at the table when making research decisions. #lcsm |
| Aparna Hegde, MD @notahedge @IASLC STAR program for patient advocates. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. Some goals: Educate about scientific process and how to read and interpret research articles. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T4. Goal: Teaching patients/advocates to communicate importance of lung cancer science and research. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. Goal: Teaching patients/advocates to communicate importance of lung cancer science and research. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. Important because we HAVE to have most important stakeholders – PATIENTS – at the table when making research deci… |
| Kristin Ito @KAdvocate_LCAM YES! YES! YES! #LCSM |
| Brendon Stiles @BrendonStilesMD T4. We also need patients to tell the story of WHY and HOW research helped them. #LungCancer funding still lags behind. Has to change. #lcsm https://t.co/Y7eds6skik |
| Anita Figueras @scifiknitter RT @BrendonStilesMD: T4. Important because we HAVE to have most important stakeholders – PATIENTS – at the table when making research deci… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T4. We also need patients to tell the story of WHY and HOW research helped them. #LungCancer funding still lags behi… |
| Kathleen Skambis @KathleenSkambis T4 should include discussions of how scientists view research results. Sometimes, appropriately, in ways more limited than many patients& advocates expect. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T4. We also need patients to tell the story of WHY and HOW research helped them. #LungCancer funding still lags behi… |
| Kristin Ito @KAdvocate_LCAM @BrendonStilesMD The patient voice is so important to help guide research! STARS aims to build the patient voice UP! #LCSM |
| Brendon Stiles @BrendonStilesMD Coming to T5. #lcsm |
| Jean Parks @geekbabe [REDACTED USER] I have 1 stable tumor, said to the Onc, can’t you use focus radiation or freeze & surgically remove it now? I do my reading 😀 #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @BrendonStilesMD The patient voice is so important to help guide research! STARS aims to build the patient voice UP! #L… |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T4 should include discussions of how scientists view research results. Sometimes, appropriately, in ways more limited… |
| Aparna Hegde, MD @notahedge This is important in spreading awareness about research, trial participation, fund raising and design of better research. #lcsm |
| Anita Figueras @scifiknitter RT @BrendonStilesMD: T4. We also need patients to tell the story of WHY and HOW research helped them. #LungCancer funding still lags behi… |
| Brendon Stiles @BrendonStilesMD T5. How can patients and advocates get more involved with research?#lcsm |
| Brendon Stiles @BrendonStilesMD T5. Scan the literature and ask questions. Reach out to authors, especially those on social media. They want the dialogue too. #lcsm |
| Kathleen Skambis @KathleenSkambis [REDACTED USER] @BrendonStilesMD That which is incentivized becomes important. |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. How can patients and advocates get more involved with research?#lcsm |
| Jean Parks @geekbabe RT @KAdvocate_LCAM: @BrendonStilesMD The patient voice is so important to help guide research! STARS aims to build the patient voice UP! #L… |
| Jean Parks @geekbabe RT @BrendonStilesMD: T4. We also need patients to tell the story of WHY and HOW research helped them. #LungCancer funding still lags behi… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T5. How can patients and advocates get more involved with research?#lcsm |
| Brendon Stiles @BrendonStilesMD T5. Several websites try to update news from the field and to put it in common language. https://t.co/0fkUOn6Xpz #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: T5. Several websites try to update news from the field and to put it in common language. https://t.co/0fkUOn6Xpz #lc… |
| Brendon Stiles @BrendonStilesMD T5. @SurvivorNetTeam does a good job of keeping an eye on scientific advances and explaining them in lay terms. https://t.co/Hy924wM24j #lcsm |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne #lcsm At MSKCC it's against the "rules" to email docs or nurses. I find that so backwards. |
| Aparna Hegde, MD @notahedge RT @BrendonStilesMD: T5. Scan the literature and ask questions. Reach out to authors, especially those on social media. They want the di… |
| Laura Greco @lgreco_ny RT @KAdvocate_LCAM: YES! YES! YES! #LCSM https://t.co/XO7OACfNMo |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. Scan the literature and ask questions. Reach out to authors, especially those on social media. They want the di… |
| Brendon Stiles @BrendonStilesMD T5. Don’t be afraid to ask researchers to describe their work in practical terms. If they can’t, it just might not be impactful! #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. Several websites try to update news from the field and to put it in common language. https://t.co/0fkUOn6Xpz #lc… |
 | Peggy Dennis @peggyddennis @BrendonStilesMD T5 Agree. But it took many many months to find the right sites. |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. @SurvivorNetTeam does a good job of keeping an eye on scientific advances and explaining them in lay terms. http… |
| Anita Figueras @scifiknitter RT @BrendonStilesMD: T5. Several websites try to update news from the field and to put it in common language. https://t.co/0fkUOn6Xpz #lc… |
| Kathleen Skambis @KathleenSkambis T5. Keep telling everyone you meet how interested you are in area and ask for their help. #lcsm |
| Brendon Stiles @BrendonStilesMD @VirginiaMByrne Lame. #lcsm |
| Kristin Ito @KAdvocate_LCAM @BrendonStilesMD @SurvivorNetTeam Thank you for sharing this! #LCSM |
| Geoff Hugo @gdhugo RT @BrendonStilesMD: T5. @SurvivorNetTeam does a good job of keeping an eye on scientific advances and explaining them in lay terms. http… |
| #LCSM Chat @lcsmchat RT @VirginiaMByrne: #lcsm At MSKCC it's against the "rules" to email docs or nurses. I find that so backwards. https://t.co/p6ohncwRon |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T5. Keep telling everyone you meet how interested you are in area and ask for their help. #lcsm |
| Aparna Hegde, MD @notahedge @cancerGRACE is also an excellent resource #lcsm |
| Brendon Stiles @BrendonStilesMD T5. Go to your local cancer hospital and ask what is happening in lung cancer research! Dialogue is key. #lcsm |
| Brendon Stiles @BrendonStilesMD T5. Joining local IRBs or other committees is also a great way to learn and make a difference. #lcsm |
| Brendon Stiles @BrendonStilesMD @notahedge @cancerGRACE Very true! #lcsm |
| #LCSM Chat @lcsmchat RT @notahedge: @cancerGRACE is also an excellent resource #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. Go to your local cancer hospital and ask what is happening in lung cancer research! Dialogue is key. #lcsm |
| Brendon Stiles @BrendonStilesMD T5. Many lung cancer organizations have committees in which patients can be involved. Yes, do advocacy and education, but ask about research too! #lcsm |
| Jean Parks @geekbabe @BrendonStilesMD Every picture tells a cancer patient’s story #LCSM https://t.co/jS4T1ruZ6p |
| Brendon Stiles @BrendonStilesMD T5. I love it that @ALKLungCancer (ALKPositive), @EGFRResisters, @ROS1ders and others are asking for a stake in research. #lcsm |
| Brendon Stiles @BrendonStilesMD Love. #lcsm https://t.co/YianVJveVv |
| Paula @lungcancer1964 RT @BrendonStilesMD: T2. We need to figure out who is at risk for lung cancer, particularly among never smokers. Data from us @WeillCornel… |
| Brendon Stiles @BrendonStilesMD Love. #lcsm https://t.co/a3qOfqa6RO |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @geekbabe: @BrendonStilesMD Every picture tells a cancer patient’s story #LCSM https://t.co/jS4T1ruZ6p |
| Kathleen Skambis @KathleenSkambis @BrendonStilesMD Education of advocates should be part of every org’s mission |
| Brendon Stiles @BrendonStilesMD Love. #lcsm https://t.co/SQyOjkVcBg |
| Laura Greco @lgreco_ny 75 Patients can get involved as reviewers for those programs that (rightly) value the patient perspective, such as @CDMRP . Then, when other organizations fail to have patients present (including lung orgs), ask, "Why not"? I guarantee you no one at the table cares more. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. Joining local IRBs or other committees is also a great way to learn and make a difference. #lcsm |
| Brendon Stiles @BrendonStilesMD T5. Every grant funding panel I have ever been on that includes a patient or advocate has been BETTER because of it. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. I love it that @ALKLungCancer (ALKPositive), @EGFRResisters, @ROS1ders and others are asking for a stake in resea… |
| Bob Steele @steele_bob RT @BrendonStilesMD: T5. Every grant funding panel I have ever been on that includes a patient or advocate has been BETTER because of it.… |
| Jean Parks @geekbabe RT @lgreco_ny: 75 Patients can get involved as reviewers for those programs that (rightly) value the patient perspective, such as @CDMRP .… |
| #LCSM Chat @lcsmchat RT @lgreco_ny: 75 Patients can get involved as reviewers for those programs that (rightly) value the patient perspective, such as @CDMRP .… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. Every grant funding panel I have ever been on that includes a patient or advocate has been BETTER because of it.… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lgreco_ny: 75 Patients can get involved as reviewers for those programs that (rightly) value the patient perspective, such as @CDMRP .… |
| Brendon Stiles @BrendonStilesMD T5. @cdmrp does a great job involving patients/advocates as peer reviewers. https://t.co/t01HPrn4nd #lcsm https://t.co/r20E3WlIfG |
| Brendon Stiles @BrendonStilesMD T5. And @AACR has an amazing Scientist-Survivor Program. https://t.co/9SRv5YSAZk #lcsm |
| Laura Greco @lgreco_ny @BrendonStilesMD @ALKLungCancer @EGFRResisters t5: New additional group, @alk_fusion It's really focusing in on the concept of patients as partners. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. @cdmrp does a great job involving patients/advocates as peer reviewers. https://t.co/t01HPrn4nd #lcsm https://t.c… |
| Brendon Stiles @BrendonStilesMD Almost time to wind the chat down. This has been an incredible discussion. #lcsm |
| Brendon Stiles @BrendonStilesMD Please share your closing thoughts! #lcsm |
| Aparna Hegde, MD @notahedge #lcsm look at these smarties presenting at #AACR19 |
| Laura Greco @lgreco_ny RT @BrendonStilesMD: T5. @cdmrp does a great job involving patients/advocates as peer reviewers. https://t.co/t01HPrn4nd #lcsm https://t.c… |
| Jean Parks @geekbabe We are husbands,wives, parents, grandparents, workers, friends.. not just cancer patients. We matter, our lives matter #LCSM |
| Brendon Stiles @BrendonStilesMD #Research has to be doing something right. Whether it is research into causes and prevention, screening, or new therapeutics - we are making progress. #lcsm https://t.co/6aOAdkygsJ |
| Kathleen Skambis @KathleenSkambis These chats are SO worthwhile. Thank you. #lcsm |
| Anita Figueras @scifiknitter RT @BrendonStilesMD: T5. I love it that @ALKLungCancer (ALKPositive), @EGFRResisters, @ROS1ders and others are asking for a stake in resea… |
| Laronica Conway @louisianagirl91 RT @BrendonStilesMD: T5. Every grant funding panel I have ever been on that includes a patient or advocate has been BETTER because of it.… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD This #lcsm |
| Paula @lungcancer1964 RT @BrendonStilesMD: T2. We also need to understand financial toxicity of cancer care today and how that impacts patients and caregivers.… |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne T5 They have the greatest stake in research! |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: T5. And @AACR has an amazing Scientist-Survivor Program. https://t.co/9SRv5YSAZk #lcsm |
| Brendon Stiles @BrendonStilesMD Let's not let up. Keep #Research strong. #lcsm https://t.co/1J0Ht5JoaW |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @BrendonStilesMD @ALKLungCancer @EGFRResisters t5: New additional group, @alk_fusion It's really focusing in on the concept… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @BrendonStilesMD: #Research has to be doing something right. Whether it is research into causes and prevention, screening, or new thera… |
| Kristin Ito @KAdvocate_LCAM Thank you @BrendonStilesMD for hosting! To learn more about the STARS program, please visit: https://t.co/CQyycc5Z87 #LCSM #strongertogether |
| Bob Steele @steele_bob RT @BrendonStilesMD: Let's not let up. Keep #Research strong. #lcsm https://t.co/1J0Ht5JoaW |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: Almost time to wind the chat down. This has been an incredible discussion. #lcsm |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: Please share your closing thoughts! #lcsm |
| Aparna Hegde, MD @notahedge #AACR19 had a survivor scientist program this year. Ask these organizations how to get involved #lcsm @ivybelkins @jillfeldman4 @EGFRResisters |
| #LCSM Chat @lcsmchat RT @geekbabe: We are husbands,wives, parents, grandparents, workers, friends.. not just cancer patients. We matter, our lives matter #LCSM |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: #Research has to be doing something right. Whether it is research into causes and prevention, screening, or new thera… |
 | Laura A. Fiorenza @LauraAFiorenza A truly educational, engaging presentation and discussion bringing the MD/NP/patient perspectives on EGFR+ lung cancer - thank you for sharing your stories. @EGFRResisters #ONSCongress #lcsm |
| Brendon Stiles @BrendonStilesMD Another way to think about it! #lcsm https://t.co/Raxa5FOAWO |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: Let's not let up. Keep #Research strong. #lcsm https://t.co/1J0Ht5JoaW |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: Thank you @BrendonStilesMD for hosting! To learn more about the STARS program, please visit: https://t.co/CQyycc5Z87 #L… |
| Jean Parks @geekbabe I see so many more young people in the waiting room than ever before. Research is key to helping #LCSM |
| #LCSM Chat @lcsmchat RT @VirginiaMByrne: #lcsm https://t.co/Oj5iec01Al |
| @dennycee RT @lgreco_ny: @BrendonStilesMD @ALKLungCancer @EGFRResisters t5: New additional group, @alk_fusion It's really focusing in on the concept… | |
| Peggy Dennis @peggyddennis Sorry to join late. These chats are informative and helpful. Research Rocks! #lcsm |
| Anita Figueras @scifiknitter RT @lgreco_ny: 75 Patients can get involved as reviewers for those programs that (rightly) value the patient perspective, such as @CDMRP .… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Yes, thank you, @BrendonStilesMD #lcsm |
| #LCSM Chat @lcsmchat RT @LauraAFiorenza: A truly educational, engaging presentation and discussion bringing the MD/NP/patient perspectives on EGFR+ lung cancer… |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: Another way to think about it! #lcsm https://t.co/Raxa5FOAWO |
| Brendon Stiles @BrendonStilesMD #Research moves the needle. Without a doubt. #lcsm https://t.co/NXhOkYBW8g |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @BrendonStilesMD It also means publishing/sharing negative #research findings to avoid wasting precious funding on less worthwhile hypotheses #lcsm |
| Paula @lungcancer1964 RT @KAdvocate_LCAM: @BrendonStilesMD Create digestible summary slides whenever they present at conferences! #LCSM |
| Brendon Stiles @BrendonStilesMD Look how far we have come in lung cancer in a very short time. #lcsm https://t.co/4L7D0EhXmh |
| #LCSM Chat @lcsmchat Thank you @BrendonStilesMD for another excellent moderating stint! #LCSM |
| Bob Steele @steele_bob RT @BrendonStilesMD: Look how far we have come in lung cancer in a very short time. #lcsm https://t.co/4L7D0EhXmh |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #Hope #lcsm |
| Jean Parks @geekbabe Thank you for the chat... I suspect finishing my taxes will get me before my cancer does #LCSM 😀 |
| Deb 🌅 @debsmithbeach RT @BrendonStilesMD: Let's not let up. Keep #Research strong. #lcsm https://t.co/1J0Ht5JoaW |
| Brendon Stiles @BrendonStilesMD Found this great graphic. Good summary of why patients should engage in research. #lcsm https://t.co/zOSXehQmhk |
 | Eden Lake @EdenLake Thank you for hosting @BrendonStilesMD! Ill be catching up on what i missed via transcript. Sorry to be absent lately, work sched is killing me. Miss my #LCSM sisters n brothers |
| Brendon Stiles @BrendonStilesMD Thanks to all of the #lcsm community who joined. And BIG thanks to all of our guests tonight. Incredible turnout! #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @BrendonStilesMD: Look how far we have come in lung cancer in a very short time. #lcsm https://t.co/4L7D0EhXmh |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: Found this great graphic. Good summary of why patients should engage in research. #lcsm https://t.co/zOSXehQmhk |
| #LCSM Chat @lcsmchat RT @BrendonStilesMD: Found this great graphic. Good summary of why patients should engage in research. #lcsm https://t.co/zOSXehQmhk |
 | KC Dill @kasedill I missed this informative chat tonight. Can’t wait to look over the notes time change got me. #lcsm |
| Aparna Hegde, MD @notahedge @BrendonStilesMD When I started fellowship there was only platinum doublet. The scene exploded over the past 4 years. #lcsm |
| Brendon Stiles @BrendonStilesMD Thanks to everyone for participating! #lcsm |
| Devika Das, MD, MSHQS @DevikaDasMD Closing thoughts - Screening saves lives. Need more robust lung cancer screening inplemtnation and continued research to study its impact #lcsm |
| Paula @lungcancer1964 RT @lgreco_ny: t3 Fund scholarships so patients can go to medical conferences. Getting a scholarship can feel like winning the lotto becau… |
| Anita Figueras @scifiknitter RT @BrendonStilesMD: Look how far we have come in lung cancer in a very short time. #lcsm https://t.co/4L7D0EhXmh |
| Bob Steele @steele_bob This has been Par Excellence! Thanks all for the great info. Look forward to seeing you at next month's LUNG CANCER SOCIAL MEDIA Twitter Chat Session. Good night all. #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @notahedge: #AACR19 had a survivor scientist program this year. Ask these organizations how to get involved #lcsm @ivybelkins @jillfeldm… |
| Aparna Hegde, MD @notahedge @BrendonStilesMD When I started fellowship there was only platinum doublet besides TKIs for NSCLC. Over 4 years, have had to learn and relearn constantly and I love it! #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @BrendonStilesMD: Please share your closing thoughts! #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @lgreco_ny: 75 Patients can get involved as reviewers for those programs that (rightly) value the patient perspective, such as @CDMRP .… |
| Brendon Stiles @BrendonStilesMD We have come a long way from this. But research got us there. And research will take us farther. #lcsm https://t.co/Zbh1RcoKiq |
| Laronica Conway @louisianagirl91 Thank you for providing some really important info for patients and their caregivers! Research isn’t just for “scientists”! We all deserve to know how we can benefit from research! #researchsaveslives #lcsm |
| Deb 🌅 @debsmithbeach @BrendonStilesMD Thanks to you too! #LCSM |
| @DavidCookeMD RT @BrendonStilesMD: Look how far we have come in lung cancer in a very short time. #lcsm https://t.co/4L7D0EhXmh | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @BrendonStilesMD: We have come a long way from this. But research got us there. And research will take us farther. #lcsm https://t.co… |
| Paula @lungcancer1964 RT @KAdvocate_LCAM: Thank you @BrendonStilesMD for hosting! To learn more about the STARS program, please visit: https://t.co/CQyycc5Z87 #L… |
| @DrGMcGinty RT @BrendonStilesMD: T3. What can researchers do to make their work more accessible to patients and advocates? #lcsm | |
| Aparna Hegde, MD @notahedge Research is amazing when its meaningful, purposeful and collaborative. Let's keep it going! Thanks for hosting the chat @BrendonStilesMD @lcsmchat As always, happy to reconnect with everyone. #lcsm |
| Brendon Stiles @BrendonStilesMD Signing off! Thanks everyone for joining. Support #Research. Do #Research. Participate in #Research. Lives depend upon it. #lcsm https://t.co/wvjfefmFPX |
| @DrGMcGinty @cjeverett @FriedbergEric @LLALO | |
| @MatthewSchabath The latest issue of 'Science, Society, and Sports'! https://t.co/Mpjg45inQO Thanks to [REDACTED USER] @ooshdesign [REDACTED USER] #lcsm #lungcancer | |
 | All things crystal clear @DhorubaKhali The latest After The Ribbon Daily! https://t.co/yLaOkUHqjW Thanks to @Nastyness61 @itsmorenamorena @pn8h4g7y1fo #hiv #lcsm |
| @DrGMcGinty Or to tumor board like @SamirPatel_MD does | |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @BrendonStilesMD Thanks for moderating #LCSM chat! |
| Jean Parks @geekbabe RT @BrendonStilesMD: Found this great graphic. Good summary of why patients should engage in research. #lcsm https://t.co/zOSXehQmhk |
| Jean Parks @geekbabe @BrendonStilesMD When I failed platinum doublet I figured I’d be dead within the yr. Research has kept me alive. Thanks for hosting #LCSM |
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