#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Janet Freeman-Daily @JFreemanDaily Welcome to #LCSM Chat! Today we’ll discuss how Patient Reported Outcomes (PROs) might improve cancer treatment and clinical trials |
 | Faces of Lung Cancer @LungCancerFaces @lisadlz123 Hey, you! Glad you're here tonight. #lcsm |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to #LCSM Chat! Today we’ll discuss how Patient Reported Outcomes (PROs) might improve cancer treatment and clinical trials |
| Janet Freeman-Daily @JFreemanDaily Look at all the early birds! Just can't wait to chat with your #LCSM tweeps. |
| Janet Freeman-Daily @JFreemanDaily We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
| Janet Freeman-Daily @JFreemanDaily @lisadlz123 Welcome! Thanks for joining. #lcsm |
 | john @JohnLPender . #lcsm |
| Faces of Lung Cancer @LungCancerFaces I'm Deana Hendrickson in broiling hot Los Angeles. It's a dry heat. That's what they tell me. #lcsm |
 | Diane 🧚🏻♀️ @diianeee I'm Diane. Dx stage IV at age 30. Tarceva/ cabozantinib is my tx currently. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @JohnLPender Hey, John! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @SunshineKK68 We see you! Thanks for dropping in. #lcsm |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here. #lcsm https://t.co/iC3Wr0BAhS |
 | Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Cannot stay to chat but had pleasure of spending a few days w/ @jfreemandaily & 1111linno & wanted to say "hi" to rest of #lcsm 💖 |
 | Bob Steele @steele_bob Bob reporting in from Greensboro, NC. It was a beautiful day here. #lcsm |
 | SunshineKK @SunshineKK68 ty #lcsm |
 | Yasmeen M. Butt @YasmeenButtMD Hi! I'm a thoracic pathology fellow at UTSW. Curious to learn from everyone. #lcsm |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #EmbraceTheHumidity #lcsm https://t.co/iAm6s8K6oj |
| Faces of Lung Cancer @LungCancerFaces @coffeemommy Hiya Stacey! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist #lcsm |
| Janet Freeman-Daily @JFreemanDaily The cool Seattle rain is lovely after nearly 100 degrees in Boston early this week. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @YasmeenButtMD: Hi! I'm a thoracic pathology fellow at UTSW. Curious to learn from everyone. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @TimAllenMDJD My cousin lived in Houston for 2 years. Said there were cockroaches the size of puppies. No thanks. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @YasmeenButtMD Welcome! Thanks for joining us. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Babies #lcsm https://t.co/iJHVyTBX9z |
| Janet Freeman-Daily @JFreemanDaily @coffeemommy Hey there! Sorry you can't stay. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @LungCancerFaces: @YasmeenButtMD Welcome! Thanks for joining us. #lcsm |
 | Jean Parks @geekbabe RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient/activist #lcsm |
| Janet Freeman-Daily @JFreemanDaily If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD |
| Jean Parks @geekbabe Hi, stage IV patient from Boston #LCSM |
| Jean Parks @geekbabe RT @JFreemanDaily: If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD |
| Faces of Lung Cancer @LungCancerFaces @geekbabe Hey, Jean! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD |
| Bob Steele @steele_bob RT @JFreemanDaily: If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD |
| Janet Freeman-Daily @JFreemanDaily While introductions continue, I'll review some #LCSM Chat guidelines |
| Faces of Lung Cancer @LungCancerFaces I'll also be tweeting for @dennycee who is out of the country but sent me her answers to the topic questions. That's devotion. #lcsm |
| Jean Parks @geekbabe @JFreemanDaily Boston was horrible this week, I lived in air conditioning #LCSM |
| Janet Freeman-Daily @JFreemanDaily @LungCancerFaces Indeed! Thanks @dennycee for sharing from across the pond. #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: While introductions continue, I'll review some #LCSM Chat guidelines |
| Faces of Lung Cancer @LungCancerFaces @itsthebunk Hi Liza! We heart you back. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
 | Sergio Panay Serra @DrSeps RT @ASCOPost: Atezolizumab Improves Overall Survival vs Docetaxel in Previously Treated Non–Small Cell Lung Cancer https://t.co/v7DgmoA1py #LCSM #Oncology |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @LungCancerFaces Indeed! Thanks @dennycee for sharing from across the pond. #lcsm |
 | Bingle @TheBingle Fascinating! https://t.co/dr2ePDNuqg |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Jean Parks @geekbabe RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| john @JohnLPender RT @TheBingle: Fascinating! https://t.co/dr2ePDNuqg |
| Jean Parks @geekbabe RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm |
| Janet Freeman-Daily @JFreemanDaily patient reported outcomes (PROs) = info provided by cancer patients to their healthcare providers about symptoms & side effects #lcsm |
 | Jennifer Ersek @JLErsek Good evening #lcsm peeps |
 | Frank Ingram, MD @Chucktowndoc Ingram here. Pathologist in Charlotte, NC. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @JLErsek Hi, thanks for joining us. #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: patient reported outcomes (PROs) = info provided by cancer patients to their healthcare providers about symptoms & side effects #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy *waving* You were mentioned fondly this week. Hope this is our year to meet F2F! RT @LungCancerFaces: @coffeemommy Hiya Stacey! #lcsm |
| Janet Freeman-Daily @JFreemanDaily A big story out of this year’s ASCO meeting was about a web-based PRO tool that actually helped advanced cancer patients live longer. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @Chucktowndoc Welcome! We love pathologists. So important. #lcsm |
| Janet Freeman-Daily @JFreemanDaily I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Me too but there is packing to be done! RT @JFreemanDaily: @coffeemommy Hey there! Sorry you can't stay. #lcsm |
 | Anita Figueras @scifiknitter Anita here - now officially a 3 year survivor! EGFR+. Now using Cancergraph to record symptoms daily. This topic will be great. #LCSM |
| Faces of Lung Cancer @LungCancerFaces @EdenLake Please come to my house next! #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: A big story out of this year’s ASCO meeting was about a web-based PRO tool that actually helped advanced cancer patients live longer. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @scifiknitter WOO HOO! Mazel Tov. #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Here we go ... #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: A big story out of this year’s ASCO meeting was about a web-based PRO tool that actually helped advanced cancer patients live longer. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: What patient-reported outcome measures would be most valuable to patients during treatment? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @scifiknitter: Anita here - now officially a 3 year survivor! EGFR+. Now using Cancergraph to record symptoms daily. This topic will be great. #LCSM |
| Bob Steele @steele_bob RT @scifiknitter: Anita here - now officially a 3 year survivor! EGFR+. Now using Cancergraph to record symptoms daily. This topic will be great. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: What patient-reported outcome measures would be most valuable to patients during treatment? #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Now I'm practicing "pack one thing; tweet one thing" - Patient Reported Outcomes are CRITICAL to understanding tx response! #lcsm |
 | colleen ziegler @ZieglerColleen Evening! Colleen from Rochester joining #lcsm |
| Jean Parks @geekbabe @JFreemanDaily T1 I would love an online log at MGH, sometimes we forget issues during appointments #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1: fatigue, leg pain, difficulty breathing, edema, nausea, lack of appetite, unsteady gait ... #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: T1: T1: What patient-reported outcome measures would be most valuable to patients during treatment? #lcsm |
| Faces of Lung Cancer @LungCancerFaces T1-The degree to which some measures help fatigue, nausea, muscle and joint aches. - from @dennycee #LCSM |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Hey there Liza. Amazing. Life is Amazing right now. Even w/ all the BS. XO RT @itsthebunk: @coffeemommy Hey there!! How are you :) #lcsm |
| Faces of Lung Cancer @LungCancerFaces @ZieglerColleen Hi Colleen! #lcsm |
| Anita Figueras @scifiknitter T1 I think there is real value in having patients record certain basic symptoms daily, to keep better track of changes. #LCSM |
| #LCSM Chat @lcsmchat RT @coffeemommy: Now I'm practicing "pack one thing; tweet one thing" - Patient Reported Outcomes are CRITICAL to understanding tx response! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @itsthebunk A fatigue scale would make sense--we have a pain scale, why not fatigue? #lcsm |
| #LCSM Chat @lcsmchat RT @geekbabe: @JFreemanDaily T1 I would love an online log at MGH, sometimes we forget issues during appointments #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: fatigue, leg pain, difficulty breathing, edema, nausea, lack of appetite, unsteady gait ... #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T1-The degree to which some measures help fatigue, nausea, muscle and joint aches. - from @dennycee #LCSM |
| #LCSM Chat @lcsmchat RT @scifiknitter: T1 I think there is real value in having patients record certain basic symptoms daily, to keep better track of changes. #LCSM |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy +1 Tracking! MT @scifiknitter: T1 Real value in having patients record certain basic symptoms daily, to keep better track of changes. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @itsthebunk A fatigue scale would make sense--we have a pain scale, why not fatigue? #lcsm |
 | Black Tina @bankszina #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1 subquestion: which symptoms/side effects during #lungcancer treatment caused you the most discomfort or problems? #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: @itsthebunk A fatigue scale would make sense--we have a pain scale, why not fatigue? #lcsm |
| colleen ziegler @ZieglerColleen RT @JFreemanDaily: @itsthebunk A fatigue scale would make sense--we have a pain scale, why not fatigue? #lcsm |
| Bingle @TheBingle @JFreemanDaily T1 Side-effects would be valuable to know. #LCSM |
| Faces of Lung Cancer @LungCancerFaces @bankszina Welcome! Glad you're with us tonight. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1 subquestion: T1 subquestion: which symptoms/side effects during #lungcancer treatment caused you the most discomfort or problems? #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Love the idea of the "Fatigue Scale" - important to baseline BEFORE treatment starts. Fatigue is so relative. #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: T1 subquestion: T1 subquestion: which symptoms/side effects during #lungcancer treatment caused you the most discomfort or problems? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @TheBingle: @JFreemanDaily T1 Side-effects would be valuable to know. #LCSM |
| Diane 🧚🏻♀️ @diianeee Fatigue for sure, and for some reason have a hard time getting the diarrhea under control. #lcsm |
| colleen ziegler @ZieglerColleen T1 fatigue #lcsm |
| Jean Parks @geekbabe @JFreemanDaily T1 fatigue, mouth sores #LCSM |
| #LCSM Chat @lcsmchat RT @TheBingle: @JFreemanDaily T1 Side-effects would be valuable to know. #LCSM |
| #LCSM Chat @lcsmchat RT @coffeemommy: Love the idea of the "Fatigue Scale" - important to baseline BEFORE treatment starts. Fatigue is so relative. #lcsm |
| #LCSM Chat @lcsmchat RT @diianeee: Fatigue for sure, and for some reason have a hard time getting the diarrhea under control. #lcsm |
| #LCSM Chat @lcsmchat RT @ZieglerColleen: T1 fatigue #lcsm |
| #LCSM Chat @lcsmchat RT @geekbabe: @JFreemanDaily T1 fatigue, mouth sores #LCSM |
| john @JohnLPender @diianeee Over the counter anti diarrhea pills work great. #lcsm |
 | Elizabeth Moon @emoontx RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: A big story out of this year’s ASCO meeting was about a web-based PRO tool that actually helped advanced cancer patients live longer. #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy And while we're tracking PROs... very important to baseline and track perceived emotional well being. #lcsm |
| Bob Steele @steele_bob I wrote a detailed log for my recent 5-month illness. It proved very helpful when seeing Docs. Memory & cognition were way off. #lcsm |
| Jean Parks @geekbabe @JFreemanDaily mouth sores are the work of the devil IMHO #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T1 subquestion: T1 subquestion: which symptoms/side effects during #lungcancer treatment caused you the most discomfort or problems? #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T1: T1: fatigue, leg pain, difficulty breathing, edema, nausea, lack of appetite, unsteady gait ... #lcsm |
| Diane 🧚🏻♀️ @diianeee @JohnLPender I tried that and it didn't work. I take lomotil and it kinda helps. #lcsm |
| #LCSM Chat @lcsmchat RT @coffeemommy: And while we're tracking PROs... very important to baseline and track perceived emotional well being. #lcsm |
| #LCSM Chat @lcsmchat RT @steele_bob: I wrote a detailed log for my recent 5-month illness. It proved very helpful when seeing Docs. Memory & cognition were way off. #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T1: T1: What patient-reported outcome measures would be most valuable to patients during treatment? #lcsm |
| Jean Parks @geekbabe @lisadlz123 hey there 😀 #lcsm |
| Anita Figueras @scifiknitter T1 Doctor guidance for what to track: which symptoms are important, when should we call in. SOB, pain, fatigue, bowels, coughing #LCSM |
| colleen ziegler @ZieglerColleen T1 my husband just said he say a fatigue scale yesterday in the exam room at MGH but no one asks about #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1 diarrhea and constipation seem minor, but make a huge difference in comfort #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: T1 diarrhea and constipation seem minor, but make a huge difference in comfort #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: T1 Doctor guidance for what to track: T1 Doctor guidance for what to track: which symptoms are important, when should we call in. SOB, pain, fatigue, bowels, coughing #LCSM |
| #LCSM Chat @lcsmchat RT @ZieglerColleen: T1 my husband just said he say a fatigue scale yesterday in the exam room at MGH but no one asks about #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1 diarrhea and constipation seem minor, but make a huge difference in comfort #lcsm |
| Janet Freeman-Daily @JFreemanDaily @scifiknitter Hah -- "bowels" is a more socially acceptable way to say it! #lcsm |
| Diane 🧚🏻♀️ @diianeee T1: the diarrhea has led to dehydration in my case #lcsm |
 | Tania Aguirre @tataguirre @lcsmchat T1 My sister paronychia. She is on Afatinib. #LCSM |
| Elizabeth Moon @emoontx RT @JFreemanDaily: Here we go ... #lcsm |
| #LCSM Chat @lcsmchat RT @diianeee: T1: T1: the diarrhea has led to dehydration in my case #lcsm |
| #LCSM Chat @lcsmchat RT @tataguirre: @lcsmchat T1 My sister paronychia. She is on Afatinib. #LCSM |
| john @JohnLPender @JFreemanDaily Minor until you've spent a 10 days in hospital without pooping. #experience #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy About to embark on seven days in the Sierras - I NEED to go pack. Love & light to each of you. Thank you for doing what you do! #lcsm 💖 |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Would be good to begin at the time of diagnosis in order to try to differentiate symptoms related to cancer frm those due to treatment #lcsm https://t.co/AyMcRpTO37 |
 | Chris Barnes PT, PhD @CBarnesPT Hello all! Joining #lcsm chat a bit late. |
| Janet Freeman-Daily @JFreemanDaily T1 coughing is also an issue--when you cough so much you can't speak, or coughing up stuff #lcsm |
| Jean Parks @geekbabe @JFreemanDaily @scifiknitter what goes on in my bowels some days sure isn't socially acceptable, lol! 😂#LCSM |
| Faces of Lung Cancer @LungCancerFaces @coffeemommy Go pack. That's an order. xo #lcsm |
| #LCSM Chat @lcsmchat RT @JohnLPender: @JFreemanDaily Minor until you've spent a 10 days in hospital without pooping. #experience #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @scifiknitter: T1 Doctor guidance for what to track: T1 Doctor guidance for what to track: which symptoms are important, when should we call in. SOB, pain, fatigue, bowels, coughing #LCSM |
| Jean Parks @geekbabe RT @JFreemanDaily: T1 coughing is also an issue--when you cough so much you can't speak, or coughing up stuff #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Would be good to begin at the time of diagnosis in order to try to differentiate symptoms related to cancer frm those due to treatment #lcsm https://t.co/AyMcRpTO37 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1 coughing is also an issue--when you cough so much you can't speak, or coughing up stuff #lcsm |
| john @JohnLPender @JFreemanDaily Speaking of coughing. I'm getting a terrible wheezing cough when I start laughing. #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm |
| Janet Freeman-Daily @JFreemanDaily @coffeemommy Have fun with your head in the clouds! #lcsm |
| Bob Steele @steele_bob @geekbabe @JFreemanDaily I had thrush for 2 weeks & mouth sores for 4 months. Had to switch to kid's toothpaste & no cold water/drinks #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JohnLPender Sorry--we'll try to be serious about everything. ;) #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Safe travels! #lcsm https://t.co/pK0shfeGya |
| Tania Aguirre @tataguirre RT @JohnLPender: @JFreemanDaily Minor until you've spent a 10 days in hospital without pooping. #experience #lcsm |
| Janet Freeman-Daily @JFreemanDaily Topic T2 is coming up … #lcsm |
| #LCSM Chat @lcsmchat RT @steele_bob: @geekbabe @JFreemanDaily I had thrush for 2 weeks & mouth sores for 4 months. Had to switch to kid's toothpaste & no cold water/drinks #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Important #lcsm https://t.co/gjfOMRsT7a |
| Elizabeth Moon @emoontx RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Janet Freeman-Daily @JFreemanDaily T1 increased pain in certain locations #lcsm |
| Jean Parks @geekbabe @steele_bob @JFreemanDaily I don't have thrush, I'm on Opdivo, drug attacking mucus membranes, hope u are better? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1 increased pain in certain locations #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: What technologies would be most effective for communicating and capturing patient reported outcomes in cancer? #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: For instance, is a smartphone app better than a web-based tool? #lcsm |
| john @JohnLPender T2 An app would be nice. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: What technologies would be most effective for communicating and capturing patient reported outcomes in cancer? #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: T2: T2: What technologies would be most effective for communicating and capturing patient reported outcomes in cancer? #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: T2: T2: For instance, is a smartphone app better than a web-based tool? #lcsm |
| Diane 🧚🏻♀️ @diianeee T2: I like the idea of an app. Has to be use mr friendly though. I have a hard time navigating Tapatalk. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: T2: What technologies would be most effective for communicating and capturing patient reported outcomes in cancer? #lcsm |
| Bob Steele @steele_bob RT @JFreemanDaily: T2: T2: What technologies would be most effective for communicating and capturing patient reported outcomes in cancer? #lcsm |
| Bingle @TheBingle @TimAllenMDJD Even better would be "the first" cell deviation. Albeit almost impossible to "know". Except in maybe very unusal way #LCSM |
| Diane 🧚🏻♀️ @diianeee User* #lcsm |
| Frank Ingram, MD @Chucktowndoc We need an App for that! #lcsm https://t.co/ibMo5OYW4G |
| Jean Parks @geekbabe @JFreemanDaily I am treated @MGHCancerCenter they have apps & web based patient portals #LCSM |
 | Deb Smith 🌻🟧 @debsmithbeach #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @diianeee: T2: T2: I like the idea of an app. Has to be use mr friendly though. I have a hard time navigating Tapatalk. #lcsm |
| colleen ziegler @ZieglerColleen T2 I am in a trial, we use electronic diaries-mine has not worked so many times now have to write it out - still vote for electronic #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: For instance, is a smartphone app better than a web-based tool? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @steele_bob @geekbabe I want to acknowledge your post, but I can't "like" that #lcsm |
| #LCSM Chat @lcsmchat RT @diianeee: T2: T2: I like the idea of an app. Has to be use mr friendly though. I have a hard time navigating Tapatalk. #lcsm |
| Faces of Lung Cancer @LungCancerFaces T2 Add a telephone tree for those who are not comfortable using computers. - from @dennycee #LCSM |
| Tania Aguirre @tataguirre RT @JFreemanDaily: T2: T2: For instance, is a smartphone app better than a web-based tool? #lcsm |
| Chris Barnes PT, PhD @CBarnesPT T1 A PRO (like the AM-PAC) to track mobility & trigger intervention by #CancerRehab professionals would be valuable to patients. #lcsm |
| Jean Parks @geekbabe @JFreemanDaily T2 I love the apps #lcsm |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: We need an App for that! #lcsm https://t.co/ibMo5OYW4G |
| #LCSM Chat @lcsmchat RT @geekbabe: @JFreemanDaily I am treated @MGHCancerCenter they have apps & web based patient portals #LCSM |
| Janet Freeman-Daily @JFreemanDaily @ZieglerColleen That sounds terribly frustrating! Non-functioning electronics are almost another type of side effect. #lcsm |
| colleen ziegler @ZieglerColleen T2 yes an app #lcsm |
| #LCSM Chat @lcsmchat RT @ZieglerColleen: T2 I am in a trial, we use electronic diaries-mine has not worked so many times now have to write it out - still vote for electronic #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T2 Add a telephone tree for those who are not comfortable using computers. - from @dennycee #LCSM |
| #LCSM Chat @lcsmchat RT @CBarnesPT: T1 A PRO (like the AM-PAC) to track mobility & trigger intervention by #CancerRehab professionals would be valuable to patients. #lcsm |
| Bingle @TheBingle @JFreemanDaily T2 Personal computer log. With notations....of course. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @ZieglerColleen That sounds terribly frustrating! Non-functioning electronics are almost another type of side effect. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @debsmithbeach Hi Deb, we see you! #lcsm |
| Jean Parks @geekbabe @JFreemanDaily @steele_bob LOL, I gotta have humor, even if I am the " butt" of a joke 😂#lcsm |
| Anita Figueras @scifiknitter T2 Multi-platform configurable software. I kept a paper log for a clinical trial - nightmare for analysis! Typing still needed in end #LCSM |
| Bob Steele @steele_bob @JFreemanDaily @steele_bob @geekbabe :) #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD We must continue to improve health care electronics. Your data might be part of your electronic medical record. #lcsm https://t.co/rtXrUzk4hJ |
| Janet Freeman-Daily @JFreemanDaily @TheBingle Would a log on a personal computer give you the same quick feedback as an app monitored by docs? #lcsm |
| #LCSM Chat @lcsmchat RT @TheBingle: @JFreemanDaily T2 Personal computer log. With notations....of course. #LCSM |
| Deb Smith 🌻🟧 @debsmithbeach @JFreemanDaily Thanks! glad I made it. #LCSM |
| #LCSM Chat @lcsmchat RT @scifiknitter: T2 Multi-platform configurable software. I kept a paper log for a clinical trial - nightmare for analysis! Typing still needed in end #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: We must continue to improve health care electronics. Your data might be part of your electronic medical record. #lcsm https://t.co/rtXrUzk4hJ |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TheBingle Would a log on a personal computer give you the same quick feedback as an app monitored by docs? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD 2d that! #lcsm https://t.co/vT0cXFjqHc |
| Janet Freeman-Daily @JFreemanDaily @lisadlz123 Like using OneNote across platforms? #lcsm |
| Tania Aguirre @tataguirre @lcsmchat An app that you can use from different devices #LCSM |
| Elizabeth Moon @emoontx RT @JFreemanDaily: If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSzfTD |
| Janet Freeman-Daily @JFreemanDaily We’ll shift to Topic T3 next … #lcsm |
| Bob Steele @steele_bob Smart phone keyboards are very difficult to use when you are having hand/finger tremors. #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: We’ll shift to Topic T3 next … #lcsm |
| Bingle @TheBingle @geekbabe @JFreemanDaily @steele_bob You just opened up that treasure chest honey! #LCSM |
| #LCSM Chat @lcsmchat RT @tataguirre: @lcsmchat An app that you can use from different devices #LCSM |
| #LCSM Chat @lcsmchat RT @steele_bob: Smart phone keyboards are very difficult to use when you are having hand/finger tremors. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @steele_bob Smartphone small buttons are tough with neuropathy also #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Probably not. Easy to forget to update. #lcsm https://t.co/tbPC1lGaUx |
| Anita Figueras @scifiknitter RT @steele_bob: Smart phone keyboards are very difficult to use when you are having hand/finger tremors. #lcsm |
| john @JohnLPender @steele_bob Tell me about it. I have Essential Tremor. #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: @steele_bob Smartphone small buttons are tough with neuropathy also #lcsm |
| Anita Figueras @scifiknitter Thus a multi platform approach would be best. #lcsm https://t.co/TPDrQFZJzG |
| Janet Freeman-Daily @JFreemanDaily T2: Some tech is better than others for PRO input ASAP, wherever you are, and get it to doctor fast. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: What patient-reported outcomes would be meaningful to patients when evaluating treatment options and related quality of life? #lcsm |
 | Jennifer Toth @MommaTothX7 @lcsmchat I tried by hand and apps and find apps to he more difficult. And I have no fear of technology. #lcsm |
| Jean Parks @geekbabe @JFreemanDaily @steele_bob using an app on a tablet is easier than on a small phone #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD This is what health care electronics folks need to hear. #lcsm #PatientsFirst https://t.co/LIVIG4F1sl |
| Jean Parks @geekbabe RT @JFreemanDaily: T3: T3: What patient-reported outcomes would be meaningful to patients when evaluating treatment options and related quality of life? #lcsm |
| Bob Steele @steele_bob @JFreemanDaily @steele_bob My neuropathy comes and goes without rhyme or reason. Sometimes multiple fingers or either hand. #lcsm |
| john @JohnLPender @geekbabe @JFreemanDaily @steele_bob Free iPads for cancer patients? 👍 #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3 put another way: If you were evaluating tx options, what PRO measures would help you use drug A vs drug B? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: T3: What patient-reported outcomes would be meaningful to patients when evaluating treatment options and related quality of life? #lcsm |
| Anita Figueras @scifiknitter RT @TimAllenMDJD: This is what health care electronics folks need to hear. #lcsm #PatientsFirst https://t.co/LIVIG4F1sl |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @steele_bob Smartphone small buttons are tough with neuropathy also #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Probably not. Easy to forget to update. #lcsm https://t.co/tbPC1lGaUx |
| #LCSM Chat @lcsmchat RT @JohnLPender: @steele_bob Tell me about it. I have Essential Tremor. #lcsm |
| Deb Smith 🌻🟧 @debsmithbeach @JFreemanDaily @lcsmchat @itsthebunk I used to plot a daily perkiness scale to measure my energy. #LCSM |
| #LCSM Chat @lcsmchat RT @scifiknitter: Thus a multi platform approach would be best. #lcsm https://t.co/TPDrQFZJzG |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: Some tech is better than others for PRO input ASAP, wherever you are, and get it to doctor fast. #lcsm |
| Bingle @TheBingle @JFreemanDaily Perhaps not. But it gives personal memory a big boost when reporting. Although, many may remember exact times,places, etc. #LCSM |
| Frank Ingram, MD @Chucktowndoc T2: A robust app could track individual PROs for a single pt and look for trends across groups of pts...quickly assess new Treatments #lcsm |
| #LCSM Chat @lcsmchat RT @MommaTothX7: @lcsmchat I tried by hand and apps and find apps to he more difficult. And I have no fear of technology. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: What patient-reported outcomes would be meaningful to patients when evaluating treatment options and related quality of life? #lcsm |
| john @JohnLPender T3 Peoples' personal experiences on each drug. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3 What side effects do you want to know about most? Physical? Emotional? Cognitive? Long-term? Short term? #lcsm |
| Jean Parks @geekbabe @JFreemanDaily T3 asking PTs questions related to their current tx, Opdivo has different side effects than traditional chemo, compare #LCSM |
| Bob Steele @steele_bob RT @debsmithbeach: @JFreemanDaily @lcsmchat @itsthebunk I used to plot a daily perkiness scale to measure my energy. #LCSM |
| Faces of Lung Cancer @LungCancerFaces T3- incl coping with radiation, assess how each strategy has worked. - from @dennycee #LCSM |
| Diane 🧚🏻♀️ @diianeee T3: physical and both long and short term #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3 put another way: T3 put another way: If you were evaluating tx options, what PRO measures would help you use drug A vs drug B? #lcsm |
| #LCSM Chat @lcsmchat RT @debsmithbeach: @JFreemanDaily @lcsmchat @itsthebunk I used to plot a daily perkiness scale to measure my energy. #LCSM |
| Jean Parks @geekbabe @JohnLPender @JFreemanDaily @steele_bob that would work for me, or access to one at appointments #LCSM |
| Bob Steele @steele_bob @JohnLPender Yes! #lcsm |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T2: T2: A robust app could track individual PROs for a single pt and look for trends across groups of pts...quickly assess new Treatments #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3 What side effects do you want to know about most? Physical? Emotional? Cognitive? Long-term? Short term? #lcsm |
| #LCSM Chat @lcsmchat RT @geekbabe: @JFreemanDaily T3 asking PTs questions related to their current tx, Opdivo has different side effects than traditional chemo, compare #LCSM |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T3- incl coping with radiation, assess how each strategy has worked. - from @dennycee #LCSM |
| #LCSM Chat @lcsmchat RT @diianeee: T3: T3: physical and both long and short term #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Broadly put, two. Symptoms related to specific treatment side effects, and general quality of life indices. #lcsm https://t.co/8GNVL7D73A |
| Jean Parks @geekbabe RT @JFreemanDaily: T3 put another way: T3 put another way: If you were evaluating tx options, what PRO measures would help you use drug A vs drug B? #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Broadly put, two. Symptoms related to specific treatment side effects, and general quality of life indices. #lcsm https://t.co/8GNVL7D73A |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3 What side effects do you want to know about most? Physical? Emotional? Cognitive? Long-term? Short term? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @debsmithbeach @lcsmchat @itsthebunk So how do we standardize definition of "perkiness" so we can compare for different patients? #lcsm |
| Jean Parks @geekbabe @JFreemanDaily T3 physical is number 1, cognitive 2, #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T3 What side effects do you want to know about most? Physical? Emotional? Cognitive? Long-term? Short term? #lcsm |
| Bob Steele @steele_bob @JFreemanDaily All of them (symptoms) #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T3 put another way: T3 put another way: If you were evaluating tx options, what PRO measures would help you use drug A vs drug B? #lcsm |
| Bingle @TheBingle @JFreemanDaily T3 That's easy. The patient just wants to live. A functional "cure" will suffice(with or without Rx's) #LCSM |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T3: T3: What patient-reported outcomes would be meaningful to patients when evaluating treatment options and related quality of life? #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T2: T2: Some tech is better than others for PRO input ASAP, wherever you are, and get it to doctor fast. #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: We’ll shift to Topic T3 next … #lcsm |
| colleen ziegler @ZieglerColleen t3 all of them, as I move along in treatment #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T2: T2: For instance, is a smartphone app better than a web-based tool? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD What side effects would you include in a general "quality of life" index? #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T2: T2: What technologies would be most effective for communicating and capturing patient reported outcomes in cancer? #lcsm |
| #LCSM Chat @lcsmchat RT @TheBingle: @JFreemanDaily T3 That's easy. The patient just wants to live. A functional "cure" will suffice(with or without Rx's) #LCSM |
| Jean Parks @geekbabe @JFreemanDaily T3 I didn't know Opdivo could cause mental effects till I saw a psych Oncologist #lcsm |
| Janet Freeman-Daily @JFreemanDaily @TheBingle We're talking metastatic cancer. We don't have a functional cure. #lcsm |
| Anita Figueras @scifiknitter T3 Which SE is important may differ between people. A broader based report giving a bigger picture is preferable to narrow selection #LCSM |
| #LCSM Chat @lcsmchat #lcsm https://t.co/VeOvTJdL0D |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T1 increased pain in certain locations #lcsm |
| Anita Figueras @scifiknitter RT @TimAllenMDJD: Broadly put, two. Symptoms related to specific treatment side effects, and general quality of life indices. #lcsm https://t.co/8GNVL7D73A |
| Elizabeth Moon @emoontx RT @JFreemanDaily: Topic T2 is coming up … #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TimAllenMDJD What side effects would you include in a general "quality of life" index? #lcsm |
| #LCSM Chat @lcsmchat RT @geekbabe: @JFreemanDaily T3 I didn't know Opdivo could cause mental effects till I saw a psych Oncologist #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TheBingle We're talking metastatic cancer. We don't have a functional cure. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD With examples of varying degrees. Limits but cannot completely eliminate subjectiveness. #lcsm https://t.co/mTylVWswcX |
| #LCSM Chat @lcsmchat RT @scifiknitter: T3 Which SE is important may differ between people. A broader based report giving a bigger picture is preferable to narrow selection #LCSM |
| colleen ziegler @ZieglerColleen t3 it is a continuum, evolving needs #lcsm |
| #LCSM Chat @lcsmchat RT @lcsmchat: #lcsm https://t.co/VeOvTJdL0D |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T1 coughing is also an issue--when you cough so much you can't speak, or coughing up stuff #lcsm |
| Janet Freeman-Daily @JFreemanDaily @scifiknitter Exactly the issue: definition of "quality of life" varies by patient. How can one "index" measure it for all? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @TheBingle: @JFreemanDaily T3 That's easy. The patient just wants to live. A functional "cure" will suffice(with or without Rx's) #LCSM |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T1 diarrhea and constipation seem minor, but make a huge difference in comfort #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: With examples of varying degrees. Limits but cannot completely eliminate subjectiveness. #lcsm https://t.co/mTylVWswcX |
| #LCSM Chat @lcsmchat RT @ZieglerColleen: t3 it is a continuum, evolving needs #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @scifiknitter Exactly the issue: @scifiknitter Exactly the issue: definition of "quality of life" varies by patient. How can one "index" measure it for all? #lcsm |
| Jean Parks @geekbabe @lisadlz123 @JFreemanDaily I have access to a psychiatrist who specializes in Oncology #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Examples can limit subjectivity. #lcsm https://t.co/6RGg44Gn6k |
| Janet Freeman-Daily @JFreemanDaily Topic T4 is coming up … #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Examples can limit subjectivity. #lcsm https://t.co/6RGg44Gn6k |
| colleen ziegler @ZieglerColleen yep ... I also see a therapist who specializes in oncology #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @TheBingle: @TimAllenMDJD Even better would be "the first" cell deviation. Albeit almost impossible to "know". Except in maybe very unusal way #LCSM |
| Bob Steele @steele_bob The combination of Codeine, Delsym, Mucinex, and Gabapentin caused severe dizziness, confusion, anxiety/panic attacks & nightmares! #lcsm |
| Bingle @TheBingle @lisadlz123 @geekbabe @JFreemanDaily T3 I learned this also. Is there a "double" fee? #LCSM |
 | Stacy W. Gray @stacywgray Great study -SM use in #Cancer. Increasing use of #lcsm. @DanaFarber users leading the way. Likely @Nikhilwagle @VanAllenLab @DrChoueiri !! https://t.co/McbXOvOFlX |
 | Tom Varghese Jr. MD, MS, MBA, FACS, MAMSE 🇺🇸 @TomVargheseJr RT @CBarnesPT: T1 A PRO (like the AM-PAC) to track mobility & trigger intervention by #CancerRehab professionals would be valuable to patients. #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: Topic T4 is coming up … #lcsm |
 | The Pearl Project @thinkpearls Let's replace blame with beauty, stigma with strength, & empower everyone with and affected by lung cancer. 💙#LCSM https://t.co/I44ep0jNS1 |
| #LCSM Chat @lcsmchat RT @steele_bob: The combination of Codeine, Delsym, Mucinex, and Gabapentin caused severe dizziness, confusion, anxiety/panic attacks & nightmares! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @steele_bob: The combination of Codeine, Delsym, Mucinex, and Gabapentin caused severe dizziness, confusion, anxiety/panic attacks & nightmares! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T4: How can we make patient-reported outcomes measurable–how to measure level of nausea? Neuropathy? Breathing difficulty? #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: @scifiknitter Exactly the issue: @scifiknitter Exactly the issue: definition of "quality of life" varies by patient. How can one "index" measure it for all? #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: @TheBingle We're talking metastatic cancer. We don't have a functional cure. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: How can we make patient-reported outcomes measurable–how to measure level of nausea? Neuropathy? Breathing difficulty? #lcsm |
 | Flemming Rasmussen @fgrazz RT @LungCancerFaces: Sure doesn't explain the alarming rise of lung cancer in never-smokers. #NoStigma #lcsm https://t.co/0YCvGuMgp8 |
| Faces of Lung Cancer @LungCancerFaces T4-First educate the patient to mult signs of neuropathy, incl tinnitus - from @dennycee #LCSM |
| Chris Barnes PT, PhD @CBarnesPT @JFreemanDaily @TimAllenMDJD Loss of physical function and difficulty with mobility should be included #lcsm |
| Diane 🧚🏻♀️ @diianeee T4: Just like we do pain. Scale of 1 to 10 for each based on severity. #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T4: T4: How can we make patient-reported outcomes measurable–how to measure level of nausea? Neuropathy? Breathing difficulty? #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: @debsmithbeach @lcsmchat @itsthebunk So how do we standardize definition of "perkiness" so we can compare for different patients? #lcsm |
| Faces of Lung Cancer @LungCancerFaces T4- standardize a template for each using faces-spend time with the pt to verify understanding prior to self rept begins - @dennycee #lcsm |
| Faces of Lung Cancer @LungCancerFaces T4-Some outcomes might require no middle choice, use 1-4 scale make them commit - from @dennycee #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @diianeee: T4: T4: Just like we do pain. Scale of 1 to 10 for each based on severity. #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T4-First educate the patient to mult signs of neuropathy, incl tinnitus - from @dennycee #LCSM |
| #LCSM Chat @lcsmchat RT @CBarnesPT: @JFreemanDaily @TimAllenMDJD Loss of physical function and difficulty with mobility should be included #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @LungCancerFaces: T4-First educate the patient to mult signs of neuropathy, incl tinnitus - from @dennycee #LCSM |
| #LCSM Chat @lcsmchat RT @diianeee: T4: T4: Just like we do pain. Scale of 1 to 10 for each based on severity. #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T4- standardize a template for each using faces-spend time with the pt to verify understanding prior to self rept begins - @dennycee #lcsm |
| Jean Parks @geekbabe @lisadlz123 @ZieglerColleen you need to remember where I'm treated @MGHCancerCenter #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T4-Some outcomes might require no middle choice, use 1-4 scale make them commit - from @dennycee #lcsm |
| Janet Freeman-Daily @JFreemanDaily @BradTSpencer This is part of today's #lcsm tweetchat discussion. Join us to see the comments! |
| Jean Parks @geekbabe RT @JFreemanDaily: T4: T4: How can we make patient-reported outcomes measurable–how to measure level of nausea? Neuropathy? Breathing difficulty? #lcsm |
 | Sabin Motwani @sabinbmotwanimd @JFreemanDaily how about number of hours after treatment? Need to make PRO as objective as possible #lcsm |
| Anita Figueras @scifiknitter T4 Recording changes in key symptoms may be more helpful than trying to define specific levels. Is it better or worse? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Recognize always some degree of subjectivity, but work to minimize. #lcsm https://t.co/NMFjlScx0S |
| #LCSM Chat @lcsmchat RT @sabinbmotwanimd: @JFreemanDaily how about number of hours after treatment? Need to make PRO as objective as possible #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @scifiknitter: T4 Recording changes in key symptoms may be more helpful than trying to define specific levels. Is it better or worse? #LCSM |
| Jean Parks @geekbabe @JFreemanDaily T4 answer is hard, severe breathing issue? You need to be seen fast #LCSM |
| Bob Steele @steele_bob @EdenLake @steele_bob I left the hospital with 11 meds, 7 prescribed. It took a month to ween off all of them. #lcsm |
| john @JohnLPender @EdenLake @steele_bob Oh Lord. I had horrible nightmares on generic Aricept. Have to take name brand. #lcsm |
 | Cancer Commons @cancercommons RT @bjork5: Clinical Trial Versus Standard Protocol: Clinical Trial Versus Standard Protocol: Why and How to Enroll in a Trial @cancercommons #PrecisionMedicine #LCSM https://t.co/nTmojylBcj |
| Bob Steele @steele_bob RT @scifiknitter: T4 Recording changes in key symptoms may be more helpful than trying to define specific levels. Is it better or worse? #LCSM |
| #LCSM Chat @lcsmchat RT @scifiknitter: T4 Recording changes in key symptoms may be more helpful than trying to define specific levels. Is it better or worse? #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Recognize always some degree of subjectivity, but work to minimize. #lcsm https://t.co/NMFjlScx0S |
| Jean Parks @geekbabe @sabinbmotwanimd @JFreemanDaily hours and/ or days? #LCSM |
| #LCSM Chat @lcsmchat RT @geekbabe: @JFreemanDaily T4 answer is hard, severe breathing issue? You need to be seen fast #LCSM |
| #LCSM Chat @lcsmchat RT @steele_bob: @EdenLake @steele_bob I left the hospital with 11 meds, 7 prescribed. It took a month to ween off all of them. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @itsthebunk Thanks for joining us! #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: @BradTSpencer This is part of today's #lcsm tweetchat discussion. Join us to see the comments! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Yep. Some symptoms need immediate attention. Key to let patient and family know what they are. Then DO NOT HESITATE to seek help. #lcsm https://t.co/VbI6UdKabx |
| Bob Steele @steele_bob RT @sabinbmotwanimd: @JFreemanDaily how about number of hours after treatment? Need to make PRO as objective as possible #lcsm |
| Bingle @TheBingle @JFreemanDaily T4 Difficult at best.1-10 scale 10 most pain/nausea etc. One persons 2 is another person's 5 is another's 10.Henceforth problem. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Yep. Some symptoms need immediate attention. Key to let patient and family know what they are. Then DO NOT HESITATE to seek help. #lcsm https://t.co/VbI6UdKabx |
| #LCSM Chat @lcsmchat RT @TheBingle: @JFreemanDaily T4 Difficult at best.1-10 scale 10 most pain/nausea etc. One persons 2 is another person's 5 is another's 10.Henceforth problem. #LCSM |
| colleen ziegler @ZieglerColleen T4 each person is so different, perhaps a more/less i.e. then yesterday my "4" may not be your "4" on a scale #lcsm |
| Janet Freeman-Daily @JFreemanDaily T4: Would be nice to measure impact on daily living activities. Perhaps "How many hours in a day do you need assistance?" #lcsm |
| #LCSM Chat @lcsmchat RT @ZieglerColleen: T4 each person is so different, perhaps a more/less i.e. then yesterday my "4" may not be your "4" on a scale #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: Would be nice to measure impact on daily living activities. Perhaps "How many hours in a day do you need assistance?" #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T4: T4: Would be nice to measure impact on daily living activities. Perhaps "How many hours in a day do you need assistance?" #lcsm |
 | Toni Choueiri, MD @DrChoueiri RT @stacywgray: Great study -SM use in #Cancer. Increasing use of #lcsm. @DanaFarber users leading the way. Likely @Nikhilwagle @VanAllenLab @DrChoueiri !! https://t.co/McbXOvOFlX |
| Bob Steele @steele_bob RT @JFreemanDaily: T4: T4: Would be nice to measure impact on daily living activities. Perhaps "How many hours in a day do you need assistance?" #lcsm |
| Janet Freeman-Daily @JFreemanDaily Measuring relative level of pain for an individual helps with treatment. More difficult to assess for ALL pts for QOL measure. #lcsm |
| Jean Parks @geekbabe @JFreemanDaily great chat! Also, we need to know our care team reads our reports. MD use of online portal communication can be spotty #lcsm |
| Anita Figueras @scifiknitter T4 Reliable, easy to record measures can be found. In MS a key measure is the time it takes to walk a short fixed distance. #LCSM |
| Jean Parks @geekbabe RT @JFreemanDaily: T4: T4: Would be nice to measure impact on daily living activities. Perhaps "How many hours in a day do you need assistance?" #lcsm |
| Jean Parks @geekbabe RT @JFreemanDaily: Measuring relative level of pain for an individual helps with treatment. More difficult to assess for ALL pts for QOL measure. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Measuring relative level of pain for an individual helps with treatment. More difficult to assess for ALL pts for QOL measure. #lcsm |
| #LCSM Chat @lcsmchat RT @geekbabe: @JFreemanDaily great chat! Also, we need to know our care team reads our reports. MD use of online portal communication can be spotty #lcsm |
| Bingle @TheBingle @steele_bob @EdenLake That in itself is a big problem. Rx's automatically written. The human body just needs a little help sometimes... @TheBingle #LCSM |
| Bob Steele @steele_bob RT @scifiknitter: T4 Reliable, easy to record measures can be found. In MS a key measure is the time it takes to walk a short fixed distance. #LCSM |
| Elizabeth Moon @emoontx RT @JFreemanDaily: T4: T4: Would be nice to measure impact on daily living activities. Perhaps "How many hours in a day do you need assistance?" #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: Measuring relative level of pain for an individual helps with treatment. More difficult to assess for ALL pts for QOL measure. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Last topic T5 is on the way … #lcsm |
| Elizabeth Moon @emoontx RT @JFreemanDaily: Last topic T5 is on the way … #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: What patient-reported outcomes be valuable in studies of cancer care and survivorship? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Yes, we're all new at this. MDs must learn and embrace. #lcsm https://t.co/t9HtIHMadd |
| Jean Parks @geekbabe RT @JFreemanDaily: Last topic T5 is on the way … #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: T4 Reliable, easy to record measures can be found. In MS a key measure is the time it takes to walk a short fixed distance. #LCSM |
| #LCSM Chat @lcsmchat RT @TheBingle: @steele_bob @EdenLake That in itself is a big problem. Rx's automatically written. The human body just needs a little help sometimes... @TheBingle #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Those that help determine quality of life. QOL info is much needed for full and accurate comparison of possible #LungCancer therapies #lcsm https://t.co/83XTyZrOKa |
| Frank Ingram, MD @Chucktowndoc It's been great to listen in and participate. Thank you! #lcsm |
| Janet Freeman-Daily @JFreemanDaily Tonight’s #LCSM Chat transcript on Patient Reported Outcomes is at https://t.co/AU9n8rcevB |
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