#LCSM Transcript

Healthcare social media transcript of the #LCSM hashtag.
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Brendon Stiles @BrendonStilesMD
Welcome to #LCSM Chat! Our topic tonight is “When doctors disagree” More info at https://t.co/Lx9qF406C9 #lcsm
David Palma @drdavidpalma
Hi everyone, I'm David Palma, lung cancer radiation oncologist, listening in. #lcsm
Bob Steele @steele_bob
Whew, made it. Our Internet service went down about 10 minutes ago. Thank goodness it's back in time! #lcsm
Brendon Stiles @BrendonStilesMD
@drdavidpalma Thanks for joining! #lcsm
Brendon Stiles @BrendonStilesMD
You can read about how to participate in the chat at https://t.co/93SziNyHT6 #lcsm
Andrea Borondy Kitts @findlungcancer
Andrea; retired engineer reformed as lung cancer advocate and researcher lost my husband to #lungcancer in April 2013 #lcsm
David Palma @drdavidpalma
@BrendonStilesMD Thanks for moderating! #lcsm
Brendon Stiles @BrendonStilesMD
We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm
Andrea Borondy Kitts @findlungcancer
Welcome David RT @drdavidpalma: Hi everyone, I'm David Palma, lung cancer radiation oncologist, listening in. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @BrendonStilesMD: Welcome to #LCSM Chat! Our topic tonight is “When doctors disagree” More info at https://t.co/Lx9qF406C9 #lcsm
Ramiro Bermudez-I.MD @davidbermudezi
RT @BrendonStilesMD: Welcome to #LCSM Chat! Our topic tonight is “When doctors disagree” More info at https://t.co/Lx9qF406C9 #lcsm
Dr. David Tom Cooke @DavidCookeMD
David Cooke, your friendly neighborhood thoracic surgeon here. #lcsm
Brendon Stiles @BrendonStilesMD
To join, enter the URL “tchat.io” in your browser and type in #lcsm #lcsm
Faces of Lung Cancer @LungCancerFaces
Sorry, ladies... #lcsm https://t.co/4MjUau6SK0
Brendon Stiles @BrendonStilesMD
I’m your moderator Brendon Stiles, a thoracic surgeon, lung cancer researcher, and patient advocate. #lcsm
Lung Cancer Hawaii @LungCancerHawai
Seven year lung cancer survivor & advocate, hoping to reach 1000 followers by the end of this chat. 54th b'day tomorrow! #lcsm
Janet Freeman-Daily @JFreemanDaily
Hey #LCSM tweeps! Janet here--writer, speaker, science geek, metastatic lung cancer patient/activist. Great topic, @BrendonStilesMD
Timothy Craig Allen @TimAllenMDJD
Tim here #lcsm https://t.co/I7dAPNHJz6
Brendon Stiles @BrendonStilesMD
In this week’s chat, we hope to help patients understand why they might hear different opinions and... #lcsm https://t.co/uwvZCZISsM
Faces of Lung Cancer @LungCancerFaces
@drdavidpalma Welcome! Glad you could make it. #lcsm
Faces of Lung Cancer @LungCancerFaces
@TimAllenMDJD My fave pathologist! #lcsm
Brendon Stiles @BrendonStilesMD
@JFreemanDaily Thanks! #lcsm
Bob Steele @steele_bob
Hi folks, I'm Bob Steele. Wife & I are both cancer survivors (breast, melanoma) but are lung cancer advocates in honor of my dad. #lcsm
Denise Cutlip @dennycee
Hi all! Happy to be back. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Welcome to #LCSM Chat! Our topic tonight is “When doctors disagree” More info at https://t.co/Lx9qF406C9 #lcsm
Brendon Stiles @BrendonStilesMD
Understand how to discuss and manage differing opinions. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: You can read about how to participate in the chat at https://t.co/93SziNyHT6 #lcsm
Fred Gray @fcgiii
Fred Gray, physicist, computer scientist, father of a surviver #lcsm
Brendon Stiles @BrendonStilesMD
Hope to give participants an understanding of what questions to ask when different opinions arise. #lcsm
Janet Freeman-Daily @JFreemanDaily
@dennycee Welcome back to the USA! Hope you enjoyed your travels. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: In this week’s chat, we hope to help patients understand why they might hear different opinions and... #lcsm https://t…
Brendon Stiles @BrendonStilesMD
We will get started soon. First, a few reminders… #lcsm
Faces of Lung Cancer @LungCancerFaces
@dennycee What a great trip you had. Glad you're back! #lcsm
Brendon Stiles @BrendonStilesMD
Please remember to include #LCSM in ALL your tweets so the other chat participants will see them during the chat #lcsm
Brendon Stiles @BrendonStilesMD
If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. #lcsm
Faces of Lung Cancer @LungCancerFaces
Deana Hendrickson in Los Angeles. Happy to be here with my community. #lcsm
Brendon Stiles @BrendonStilesMD
I will announce FOUR topics (T1 T2 etc). Please label your responses with T1, T2, etc to make transcript easier to follow. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Understand how to discuss and manage differing opinions. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Hope to give participants an understanding of what questions to ask when different opinions arise. #lcsm
Andrea Borondy Kitts @findlungcancer
WOW just saw this 100000X MT @LungCancerHawai: ICYMI @LungCancerFaces posted an incredible rant https://t.co/SGGC00J9XN #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Please remember to include #LCSM in ALL your tweets so the other chat participants will see them during the chat #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. #lcsm
Dr. David Tom Cooke @DavidCookeMD
@BidenCancer We're missing you! #lcsm @lcsmchat tweet chat starts now!
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: I will announce FOUR topics (T1 T2 etc). Please label your responses with T1, T2, etc to make transcript easier to fol…
Brendon Stiles @BrendonStilesMD
RT @DavidCookeMD: @BidenCancer We're missing you! #lcsm @lcsmchat tweet chat starts now!
#LCSM Chat @lcsmchat
RT @DavidCookeMD: @BidenCancer We're missing you! #lcsm @lcsmchat tweet chat starts now!
H. Jack West, MD @JackWestMD
Hi, folks! I'm a med onc w/major focus on lung cancer, based in Seattle, & founder/president of cancer edu nonprofit @cancerGRACE. #lcsm
Brendon Stiles @BrendonStilesMD
We’ll start with Topic T1 in a minute. Great to have such a diverse group here! Thanks to everyone for joining. #lcsm
Dr. David Tom Cooke @DavidCookeMD
You are making a difference! https://t.co/olJo1jA6bF
Brendon Stiles @BrendonStilesMD
@JackWestMD @cancerGRACE Thanks for being here. #lcsm
H. Jack West, MD @JackWestMD
Of course. Happy to have made it. RT @BrendonStilesMD: @JackWestMD @cancerGRACE Thanks for being here. #lcsm
Faces of Lung Cancer @LungCancerFaces
@JackWestMD Hi, Jack! Good time to mention that I support @cancerGRACE by shopping via Amazon Smile. Check it out. #lcsm
Brendon Stiles @BrendonStilesMD
T1: What are common scenarios in which you have seen lung cancer doctors disagree? #lcsm
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: Hope to give participants an understanding of what questions to ask when different opinions arise. #lcsm
Anita Figueras @scifiknitter
@steele_bob I empathize heartily. #lcsm
Brendon Stiles @BrendonStilesMD
T1. Most of these situations arise because we lack definitive, randomized data for many scenarios. #lcsm
H. Jack West, MD @JackWestMD
T1) most commonly which local therapy (surgery or radiation) should be recommended to a pt. #lcsm
Brendon Stiles @BrendonStilesMD
T1. Also important to recognize that clinical trials w/ strict entry criteria can’t always be tailored to individual patients. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @BrendonStilesMD: T1. Most of these situations arise because we lack definitive, randomized data for many scenarios. #lcsm
Andrea Borondy Kitts @findlungcancer
T1 Genomic testing in heavy smokers, radiation for patients with COPD, and surgery for Stage IIIA #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1: What are common scenarios in which you have seen lung cancer doctors disagree? #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Most of these situations arise because we lack definitive, randomized data for many scenarios. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: T1) most commonly which local therapy (surgery or radiation) should be recommended to a pt. #lcsm
Brendon Stiles @BrendonStilesMD
T1. At our tumor board: management of GGOs, high risk stage I, stage IIIA, maintenance chemo are frequent disagreements. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Also important to recognize that clinical trials w/ strict entry criteria can’t always be tailored to individual…
Lisa Moran @plh4lisa
Hello! Lisa in Colorado. Nsclc, stage 4, egfr+ #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T1 Genomic testing in heavy smokers, radiation for patients with COPD, and surgery for Stage IIIA #lcsm
Faces of Lung Cancer @LungCancerFaces
@teamplh4lisa Hi Lisa! #lcsm
Brendon Stiles @BrendonStilesMD
@JackWestMD Hmmm...this is controversial? #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JackWestMD: T1) most commonly which local therapy (surgery or radiation) should be recommended to a pt. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @findlungcancer: T1 Genomic testing in heavy smokers, radiation for patients with COPD, and surgery for Stage IIIA #lcsm
H. Jack West, MD @JackWestMD
T1) also questions around whether it's appropriate to pursue local therapy in selected pts w/advanced NSCLC. #lcsm
Andrea Borondy Kitts @findlungcancer
T1 PET scan of biopsy first #lcsm
Brendon Stiles @BrendonStilesMD
T1. Surgery vs. SBRT for high risk stage IA is obviously controversial. Argument without much unbiased data. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @BrendonStilesMD: T1. At our tumor board: management of GGOs, high risk stage I, stage IIIA, maintenance chemo are frequent disagreemen…
Janet Freeman-Daily @JFreemanDaily
T1 Docs may disagree on best treatment option when nodule/tumor is growing, but biopsy cannot confirm cancer. #lcsm
David Palma @drdavidpalma
T1: I agree with the lists, one other scenario is oligometastatic stage IV (i.e a limited number of metastases) #lcsm
Lung Cancer Hawaii @LungCancerHawai
T1 Rural settings, few docs=less specialization, less lung cancer training, see little benefit in referring st4 pt outside the state. #lcsm
Bob Steele @steele_bob
I have chronic bronchitis & a 30 pack history. Chest CT on Monday showed my 3 nodules are stable. 2 of them are new found in 2016. #lcsm
John from Alabama @JohnLPender
The John in Georgia. Stage 4 ALK+ #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. At our tumor board: management of GGOs, high risk stage I, stage IIIA, maintenance chemo are frequent disagreemen…
Brendon Stiles @BrendonStilesMD
@JackWestMD Great that we are even having this debate! #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: T1) also questions around whether it's appropriate to pursue local therapy in selected pts w/advanced NSCLC. #lcsm
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: T1. Surgery vs. SBRT for high risk stage IA is obviously controversial. Argument without much unbiased data. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T1 PET scan of biopsy first #lcsm
Steve Holderness @dark_hawk_98
4.5 year (and counting LOL) NSCLC-Squamous survivor, Stage IIIA #lcsm
Ramiro Bermudez-I.MD @davidbermudezi
RT @BrendonStilesMD: T1. Surgery vs. SBRT for high risk stage IA is obviously controversial. Argument without much unbiased data. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Surgery vs. SBRT for high risk stage IA is obviously controversial. Argument without much unbiased data. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1 Docs may disagree on best treatment option when nodule/tumor is growing, but biopsy cannot confirm cancer. #lcsm
#LCSM Chat @lcsmchat
RT @drdavidpalma: T1: I agree with the lists, one other scenario is oligometastatic stage IV (i.e a limited number of metastases) #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JackWestMD: T1) also questions around whether it's appropriate to pursue local therapy in selected pts w/advanced NSCLC. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerHawai: T1 Rural settings, few docs=less specialization, less lung cancer training, see little benefit in referring st4 pt out…
Brendon Stiles @BrendonStilesMD
@JohnLPender Glad you are here. #lcsm
Janet Freeman-Daily @JFreemanDaily
T1 Docs may disagree about whether stereotactic radiation is appropriate for treating brain mets #lcsm
Dr. David Tom Cooke @DavidCookeMD
A1: Is a cancer mult-focal, i.e. resect or treat one or more, and follow the others, or is it metastatic. #LCSM
Brendon Stiles @BrendonStilesMD
T1. Key is to include patient expectations and goals in decision making process. Good to see both surgeon and #RadOnc. #lcsm
Lung Cancer Hawaii @LungCancerHawai
Aint that the truth! #lcsm https://t.co/EOT4VPtWNP
Faces of Lung Cancer @LungCancerFaces
@JohnLPender Hi, John! #lcsm
H. Jack West, MD @JackWestMD
T1) sometimes Qs of whether to prioritize a novel targeted therapy based on molecular testing over standard, proven systemic therapy #lcsm
Andrea Borondy Kitts @findlungcancer
T1 Immunotherapy or 2nd line targeted treatment if have treatable mutation #lcsm
Janet Freeman-Daily @JFreemanDaily
T1 When patient gets brain mets while on targeted therapy that doesn't get into brain--radiate, or change drugs? #lcsm
Brendon Stiles @BrendonStilesMD
T1. Have to remember shared decision making. #lcsm https://t.co/2R2rT7FVpq
Faces of Lung Cancer @LungCancerFaces
@dark_hawk_98 Welcome, Steve! #lcsm
Brendon Stiles @BrendonStilesMD
@JFreemanDaily Great question. #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @BrendonStilesMD: T1. Have to remember shared decision making. #lcsm https://t.co/2R2rT7FVpq
Andrea Borondy Kitts @findlungcancer
Rebiopsy after progression #lcsm
Timothy Craig Allen @TimAllenMDJD
And whether to rebiopsy. #lcsm https://t.co/MxzgWZkNAq
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1 Docs may disagree about whether stereotactic radiation is appropriate for treating brain mets #lcsm
American Lung Assoc. @LungAssociation
T:1 Adjunct therapy after surgery #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A1: Is a cancer mult-focal, i.e. resect or treat one or more, and follow the others, or is it metastatic. #LCSM
Brendon Stiles @BrendonStilesMD
T1. Among surgeons, we still debate chemo vs. chemoRT for induction therapy of stage IIIA. Some don’t even recommend surgery.#lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Key is to include patient expectations and goals in decision making process. Good to see both surgeon and #RadOn
#LCSM Chat @lcsmchat
RT @JackWestMD: T1) sometimes Qs of whether to prioritize a novel targeted therapy based on molecular testing over standard, proven systemi…
#LCSM Chat @lcsmchat
RT @findlungcancer: T1 Immunotherapy or 2nd line targeted treatment if have treatable mutation #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1 When patient gets brain mets while on targeted therapy that doesn't get into brain--radiate, or change drugs? #lcsm
Andrea Borondy Kitts @findlungcancer
How often to do brain MRI to check for metastasis #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Have to remember shared decision making. #lcsm https://t.co/2R2rT7FVpq
Bob Steele @steele_bob
RT @BrendonStilesMD: T1. Among surgeons, we still debate chemo vs. chemoRT for induction therapy of stage IIIA. Some don’t even recommend…
Dave deBronkart @ePatientDave
#LCSM space hi! Parenthesis it looks like my dictation isn't working too well)
Anita Figueras @scifiknitter
RT @BrendonStilesMD: T1. Key is to include patient expectations and goals in decision making process. Good to see both surgeon and #RadOn
#LCSM Chat @lcsmchat
RT @findlungcancer: Rebiopsy after progression #lcsm
Brendon Stiles @BrendonStilesMD
@TimAllenMDJD I love the rebiopsy. Lower risk than appreciated. High yield. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: And whether to rebiopsy. #lcsm https://t.co/MxzgWZkNAq
H. Jack West, MD @JackWestMD
Yes, we struggle w/practice/ &ideas running ahead of data. RT @BrendonStilesMD: @JackWestMD Great that we are even having this debate! #lcsm
#LCSM Chat @lcsmchat
RT @LungAssociation: T:1 Adjunct therapy after surgery #LCSM
Dr. David Tom Cooke @DavidCookeMD
Adjuvant, yes. #LCSM Debate centers around large tumors >4cm. #LCSM https://t.co/wSyC5Gty8F
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Among surgeons, we still debate chemo vs. chemoRT for induction therapy of stage IIIA. Some don’t even recommend…
Andrea Borondy Kitts @findlungcancer
chemo/RT before surgery or after surgery #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: How often to do brain MRI to check for metastasis #lcsm
Lung Cancer Hawaii @LungCancerHawai
Some docs don't understand the pt does have goals! MT @BrendonStilesMD: T1. Key is to include patient expectations and goals #lcsm
Anita Figueras @scifiknitter
RT @BrendonStilesMD: T1. Have to remember shared decision making. #lcsm https://t.co/2R2rT7FVpq
Timothy Craig Allen @TimAllenMDJD
Molecular signature likely to have changed. #lcsm https://t.co/VSPagrF7Tg
Janet Freeman-Daily @JFreemanDaily
T1: If biopsy of lung "spot" in a previous radiation field shows only inflammation, but spot is growing--treat, or watch and wait? #lcsm
Faces of Lung Cancer @LungCancerFaces
@ePatientDave Hi, Dave! Thanks for joining us. #lcsm
Brendon Stiles @BrendonStilesMD
@JackWestMD True. Have to be careful not to swing to far towards aggressive treatment that might harm. #lcsm
Ramiro Bermudez-I.MD @davidbermudezi
@BrendonStilesMD Key is tumor board !! always #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @TimAllenMDJD I love the rebiopsy. Lower risk than appreciated. High yield. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: Yes, we struggle w/practice/ &ideas running ahead of data. RT @BrendonStilesMD: @JackWestMD Great that we are even having t…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Adjuvant, yes. #LCSM Debate centers around large tumors >4cm. #LCSM https://t.co/wSyC5Gty8F
#LCSM Chat @lcsmchat
RT @findlungcancer: chemo/RT before surgery or after surgery #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerHawai: Some docs don't understand the pt does have goals! MT @BrendonStilesMD: T1. Key is to include patient expectations an…
Ramiro Bermudez-I.MD @davidbermudezi
RT @BrendonStilesMD: T1. Have to remember shared decision making. #lcsm https://t.co/2R2rT7FVpq
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Molecular signature likely to have changed. #lcsm https://t.co/VSPagrF7Tg
Andrea Borondy Kitts @findlungcancer
T1 clinical trail or standard of care 2nd or 3rd line #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1: If biopsy of lung "spot" in a previous radiation field shows only inflammation, but spot is growing--treat, or watch…
Dr. David Tom Cooke @DavidCookeMD
When people are in the same room, consensus is likely to occur. #LCSM https://t.co/LOZjZbX8De
Anita Figueras @scifiknitter
RT @LungCancerHawai: Some docs don't understand the pt does have goals! MT @BrendonStilesMD: T1. Key is to include patient expectations an…
Brendon Stiles @BrendonStilesMD
@JFreemanDaily This comes up all the time. So much depends upon path and a "true negative" biopsy. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @JackWestMD True. Have to be careful not to swing to far towards aggressive treatment that might harm. #lcsm
#LCSM Chat @lcsmchat
RT @davidbermudezi: @BrendonStilesMD Key is tumor board !! always #lcsm
Ramiro Bermudez-I.MD @davidbermudezi
RT @LungCancerHawai: Some docs don't understand the pt does have goals! MT @BrendonStilesMD: T1. Key is to include patient expectations an…
#LCSM Chat @lcsmchat
RT @findlungcancer: T1 clinical trail or standard of care 2nd or 3rd line #lcsm
Brendon Stiles @BrendonStilesMD
RT @davidbermudezi: @BrendonStilesMD Key is tumor board !! always #lcsm
Janet Freeman-Daily @JFreemanDaily
T1: If NSCLC patient tests negative for EGFR, ALK, ROS1, PD-L1: start chemo, immunotherapy, or test for more mutations? #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: When people are in the same room, consensus is likely to occur. #LCSM https://t.co/LOZjZbX8De
Timothy Craig Allen @TimAllenMDJD
Yep. All these areas are ones where there needs to be more evidence based literature. #lcsm https://t.co/58NVrZRZU9
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @JFreemanDaily This comes up all the time. So much depends upon path and a "true negative" biopsy. #lcsm
Angie Derrick @AngieBDerrick
RT @LungCancerHawai: T1 Rural settings, few docs=less specialization, less lung cancer training, see little benefit in referring st4 pt out…
Bob Steele @steele_bob
RT @davidbermudezi: @BrendonStilesMD Key is tumor board !! always #lcsm
Angie Derrick @AngieBDerrick
RT @JFreemanDaily: T1 Docs may disagree on best treatment option when nodule/tumor is growing, but biopsy cannot confirm cancer. #lcsm
Parvez Dara MD, MBA @JediPD
Agree a. If disease b. Molecular change https://t.co/qfn6ps3Pfp
Diane @diianeee
@JFreemanDaily T1: Testing for more mutations likely saved my life. #lcsm
Brendon Stiles @BrendonStilesMD
@JFreemanDaily Another great question. As a non-medical oncologist---I say start chemo or immune first, depending upon smoking/PDL1. #lcsm
Timothy Craig Allen @TimAllenMDJD
#LungCancer biomarker guidelines are helpful. #lcsm https://t.co/68VpYwsd2E
Andrea Borondy Kitts @findlungcancer
this is key; too often pt & family not included until >recommendation made MT @BrendonStilesMD: T1. Have to remember SDM #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1: If NSCLC patient tests negative for EGFR, ALK, ROS1, PD-L1: start chemo, immunotherapy, or test for more mutations?…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Yep. All these areas are ones where there needs to be more evidence based literature. #lcsm https://t.co/58NVrZRZU9
Bob Steele @steele_bob
RT @BrendonStilesMD: @JFreemanDaily This comes up all the time. So much depends upon path and a "true negative" biopsy. #lcsm
#LCSM Chat @lcsmchat
RT @diianeee: @JFreemanDaily T1: Testing for more mutations likely saved my life. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @JFreemanDaily Another great question. As a non-medical oncologist---I say start chemo or immune first, depending upo…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: #LungCancer biomarker guidelines are helpful. #lcsm https://t.co/68VpYwsd2E
#LCSM Chat @lcsmchat
RT @findlungcancer: this is key; too often pt & family not included until >recommendation made MT @BrendonStilesMD: T1. Have to remember SD…
H. Jack West, MD @JackWestMD
T1) Def valuable to have all parties hash out pros & cons of diff strategies in tumor board setting. Not always consensus, but often. #lcsm
Lisa Moran @plh4lisa
T1: to use the word remission or not in stage 4. #lcsm
Sabin Motwani @sabinbmotwanimd
Sorry I'm joining a bit late. Sabin Motwani, rad onc from @RutgersCancer #LCSM
Brendon Stiles @BrendonStilesMD
@JackWestMD Critical for community to realize that there is NOT always consensus at tumor board. OK to disagree. #lcsm
Bob Steele @steele_bob
RT @diianeee: @JFreemanDaily T1: Testing for more mutations likely saved my life. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: T1) Def valuable to have all parties hash out pros & cons of diff strategies in tumor board setting. Not always consensus,…
#LCSM Chat @lcsmchat
RT @teamplh4lisa: T1: to use the word remission or not in stage 4. #lcsm
David Palma @drdavidpalma
T1: Also critical for patients to realize they can ask for tumor board discussion of their case #lcsm
Brendon Stiles @BrendonStilesMD
T1. Disagreement still exists about CT screening benefit. #lcsm
Dr. David Tom Cooke @DavidCookeMD
Ok to disagree...but just not with me... #LCSM https://t.co/lfcy8asvrx
Neera Gupta, MD, MAS @neeraguptamd
RT @BrendonStilesMD: T1. Have to remember shared decision making. #lcsm https://t.co/2R2rT7FVpq
Andrea Borondy Kitts @findlungcancer
start with full panel checks for all MT @JFreemanDaily: T1: If negative EGFR, ALK, ROS1, PD-L1: start chemo, immuno, or test more? #lcsm
Mike Thompson, MD, PhD, FASCO @mtmdphd
RT @n8pennell: Agree, not an easy topic but nice blog. "Survivorship" in the lung cancer world where 15% survive 5 years very diff…
Brendon Stiles @BrendonStilesMD
@drdavidpalma Yes. Great point. #lcsm
Faces of Lung Cancer @LungCancerFaces
@sabinbmotwanimd You're fine! Glad to have #radonc represented. #lcsm
Bob Steele @steele_bob
RT @findlungcancer: start with full panel checks for all MT @JFreemanDaily: T1: If negative EGFR, ALK, ROS1, PD-L1: start chemo, immuno, or…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @JackWestMD Critical for community to realize that there is NOT always consensus at tumor board. OK to disagree. #lcsm
Dr. David Tom Cooke @DavidCookeMD
That's like disagreeing that the world is round. #LCSM https://t.co/gE9RL2zDvM
#LCSM Chat @lcsmchat
RT @drdavidpalma: T1: Also critical for patients to realize they can ask for tumor board discussion of their case #lcsm
Andrea Borondy Kitts @findlungcancer
yes among the ignorant and those with implicit stigma RT @BrendonStilesMD: T1. Disagreement still exists about CT screening benefit. #lcsm
Parvez Dara MD, MBA @JediPD
Love minority justified opinions...always better than kumbaya #lcsm https://t.co/M6e2IYst4V
Brendon Stiles @BrendonStilesMD
Let’s get ready to move on to T2. #lcsm
Faces of Lung Cancer @LungCancerFaces
There shouldn't be disagreement there. Just saying. RT @BrendonStilesMD: T1. Disagreement still exists about CT screening benefit. #lcsm
Lung Cancer Hawaii @LungCancerHawai
RT @drdavidpalma: T1: Also critical for patients to realize they can ask for tumor board discussion of their case #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. Disagreement still exists about CT screening benefit. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: start with full panel checks for all MT @JFreemanDaily: T1: If negative EGFR, ALK, ROS1, PD-L1: start chemo, immuno, or…
H. Jack West, MD @JackWestMD
@BrendonStilesMD if not tumor board consensus, it's fine to have diff docs present their view directly to pt, then the pt decides. #lcsm
Bob Steele @steele_bob
RT @drdavidpalma: T1: Also critical for patients to realize they can ask for tumor board discussion of their case #lcsm
Enlightening Results @GraceCordovano
T1: Doctors often disagree on patient performance & nutritional status. Plz listen to #patients describe how they truly feel and live #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: That's like disagreeing that the world is round. #LCSM https://t.co/gE9RL2zDvM
Brendon Stiles @BrendonStilesMD
@DavidCookeMD Preaching to the choir! #lcsm
Dr. David Tom Cooke @DavidCookeMD
15% survival number is a little misleading. It's all about pathologic stage. Early stage more favorable, hence #lungcancerscreening #LCSM https://t.co/hDrM3ToRTs
Andrea Borondy Kitts @findlungcancer
key point - many don't know about tumor board when 1st diagnosed MT @drdavidpalma: T1: they can ask for tumor board discussion #lcsm
Brendon Stiles @BrendonStilesMD
T1. In any of these situations, important to understand and examine both sides. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @BrendonStilesMD: @TimAllenMDJD I love the rebiopsy. Lower risk than appreciated. High yield. #lcsm
Lung Cancer Hawaii @LungCancerHawai
RT @findlungcancer: yes among the ignorant and those with implicit stigma RT @BrendonStilesMD: T1. Disagreement still exists about CT scree…
Brendon Stiles @BrendonStilesMD
T2: When getting a 2nd opinion, should the new Doc be given the opinion of the first before developing his/her own treatment plan? #lcsm
Andrea Borondy Kitts @findlungcancer
RT @GraceCordovano: T1: Doctors often disagree on patient performance & nutritional status. Plz listen to #patients describe how they truly…
Janet Freeman-Daily @JFreemanDaily
T1 How often does patient hear a different treatment option from a second opinion? #lcsm
Dr. David Tom Cooke @DavidCookeMD
I've had a couple patients ask that their case be discussed in tumor board. Some direct referrals specifically for tumor board. #LCSM https://t.co/VPpQwvm8uW
#LCSM Chat @lcsmchat
RT @findlungcancer: yes among the ignorant and those with implicit stigma RT @BrendonStilesMD: T1. Disagreement still exists about CT scree…
#LCSM Chat @lcsmchat
RT @JediPD: Love minority justified opinions...always better than kumbaya #lcsm https://t.co/M6e2IYst4V
Brendon Stiles @BrendonStilesMD
T2. This is hard for me. Good for new consult to have all info. However, also good to not bias his/her opinion. #lcsm
Bishal Gyawali @oncology_bg
RT @n8pennell: Agree, not an easy topic but nice blog. "Survivorship" in the lung cancer world where 15% survive 5 years very diff…
#LCSM Chat @lcsmchat
RT @LungCancerFaces: There shouldn't be disagreement there. Just saying. RT @BrendonStilesMD: T1. Disagreement still exists about CT screen…
#LCSM Chat @lcsmchat
RT @JackWestMD: @BrendonStilesMD if not tumor board consensus, it's fine to have diff docs present their view directly to pt, then the pt d…
Bob Steele @steele_bob
RT @GraceCordovano: T1: Doctors often disagree on patient performance & nutritional status. Plz listen to #patients describe how they truly…
#LCSM Chat @lcsmchat
RT @GraceCordovano: T1: Doctors often disagree on patient performance & nutritional status. Plz listen to #patients describe how they truly…
Sabin Motwani @sabinbmotwanimd
@LungCancerFaces @BrendonStilesMD Sometimes disagreement is good. It leads to increased dialogue and more communication. #LCSM
Navneet Majhail, MD @BldCancerDoc
RT @n8pennell: Agree, not an easy topic but nice blog. "Survivorship" in the lung cancer world where 15% survive 5 years very diff…
Lung Cancer Hawaii @LungCancerHawai
RT @findlungcancer: key point - many don't know about tumor board when 1st diagnosed MT @drdavidpalma: T1: they can ask for tumor board dis…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: 15% survival number is a little misleading. It's all about pathologic stage. Early stage more favorable, hence…
Brendon Stiles @BrendonStilesMD
@drCarterHarris Very true. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: key point - many don't know about tumor board when 1st diagnosed MT @drdavidpalma: T1: they can ask for tumor board dis…
Andrea Borondy Kitts @findlungcancer
many don't even ask for 2nd opinion MT @JFreemanDaily: T1 How often does patient hear a different treatment option second opinion? #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T1. In any of these situations, important to understand and examine both sides. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2: When getting a 2nd opinion, should the new Doc be given the opinion of the first before developing his/her own tre…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1 How often does patient hear a different treatment option from a second opinion? #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: T1: If NSCLC patient tests negative for EGFR, ALK, ROS1, PD-L1: start chemo, immunotherapy, or test for more mutations?…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: I've had a couple patients ask that their case be discussed in tumor board. Some direct referrals specifically for…
Danielle Pardue @Actorielle
RT @sabinbmotwanimd: @LungCancerFaces @BrendonStilesMD Sometimes disagreement is good. It leads to increased dialogue and more communicati…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. This is hard for me. Good for new consult to have all info. However, also good to not bias his/her opinion. #lcsm
Brendon Stiles @BrendonStilesMD
@sabinbmotwanimd @LungCancerFaces Great example of surgery vs. SBRT for early stage. #lcsm
Timothy Craig Allen @TimAllenMDJD
But unfortunately relatively few diagnosed early. #lcsm https://t.co/k4QpPPnMqj
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: @LungCancerFaces @BrendonStilesMD Sometimes disagreement is good. It leads to increased dialogue and more communicati…
Dr. David Tom Cooke @DavidCookeMD
A2: I like to know the previous opinion, so I can understand where the patient is coming from in regards to frame of mind. #LCSM https://t.co/ZqXI2gCEfi
Janet Freeman-Daily @JFreemanDaily
T2: I favor giving the second opinion doc at an academic center all existing info (including treatment recommendation from 1st doc) . #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: many don't even ask for 2nd opinion MT @JFreemanDaily: T1 How often does patient hear a different treatment option se…
A.J. BRAVE @bravemediamo
Great lung cancer topic tonight #LCSM when docs disagree https://t.co/eS9SJewqRN
Brendon Stiles @BrendonStilesMD
T2. I prefer to have all diagnostic/staging info, but not to know suggested treatment plan. #lcsm
Flemming Rasmussen @fgrazz
@BrendonStilesMD #lcsm...fighting thru a rain deluge satellite connection...tonight from #ChazyLakeNY
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T2. This is hard for me. Good for new consult to have all info. However, also good to not bias his/her opinion. #lcsm
A.J. BRAVE @bravemediamo
RT @BrendonStilesMD: T2: When getting a 2nd opinion, should the new Doc be given the opinion of the first before developing his/her own tre…
Bob Steele @steele_bob
T2 - I would prefer a completely unbiased 2nd opinion. Avoid group think. #lcsm
American Lung Assoc. @LungAssociation
RT @JFreemanDaily: T2: I favor giving the second opinion doc at an academic center all existing info (including treatment recommendation fr…
Parvez Dara MD, MBA @JediPD
T2: available opinions should not change critical thinking of the 2nd opinion generator...methinks #lcsm
Timothy Craig Allen @TimAllenMDJD
Hard to standardize. #lcsm https://t.co/zZ97oUNHbQ
Danielle Pardue @Actorielle
RT @DavidCookeMD: I've had a couple patients ask that their case be discussed in tumor board. Some direct referrals specifically for…
Danielle Pardue @Actorielle
RT @JFreemanDaily: T1 How often does patient hear a different treatment option from a second opinion? #lcsm
Dr. David Tom Cooke @DavidCookeMD
Why is that? #LCSM https://t.co/jPP603FrXB
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T2: When getting a 2nd opinion, should the new Doc be given the opinion of the first before developing his/her own tre…
Andrea Borondy Kitts @findlungcancer
T2 Share full info but not suggested treatment plan -- could share the various options discussed #lcsm
Brendon Stiles @BrendonStilesMD
@JFreemanDaily My only issue with this is that sometimes there is "salesmanship" rather than honest opinion. It happens. #lcsm
#LCSM Chat @lcsmchat
#lcsm https://t.co/x6pSUfu4QS
Danielle Pardue @Actorielle
RT @JackWestMD: @BrendonStilesMD if not tumor board consensus, it's fine to have diff docs present their view directly to pt, then the pt d…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @sabinbmotwanimd @LungCancerFaces Great example of surgery vs. SBRT for early stage. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: But unfortunately relatively few diagnosed early. #lcsm https://t.co/k4QpPPnMqj
Lisa Moran @plh4lisa
T2: I would want onc 2 have info to give pros and cons of onc 1 plan and then give their treatment plan. #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A2: I like to know the previous opinion, so I can understand where the patient is coming from in regards to frame o…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: I favor giving the second opinion doc at an academic center all existing info (including treatment recommendation fr…
Janet Freeman-Daily @JFreemanDaily
T2: Especially when seeking 2nd opinion from targeted therapy expert, I think one must share ALL info. Play fair w/2nd opinion doc. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. I prefer to have all diagnostic/staging info, but not to know suggested treatment plan. #lcsm
Brendon Stiles @BrendonStilesMD
@DavidCookeMD I like to not be biased before understanding patient. #lcsm
#LCSM Chat @lcsmchat
RT @steele_bob: T2 - I would prefer a completely unbiased 2nd opinion. Avoid group think. #lcsm
#LCSM Chat @lcsmchat
RT @JediPD: T2: available opinions should not change critical thinking of the 2nd opinion generator...methinks #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Hard to standardize. #lcsm https://t.co/zZ97oUNHbQ
Bob Steele @steele_bob
RT @TimAllenMDJD: Hard to standardize. #lcsm https://t.co/zZ97oUNHbQ
#LCSM Chat @lcsmchat
RT @findlungcancer: T2 Share full info but not suggested treatment plan -- could share the various options discussed #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @JFreemanDaily My only issue with this is that sometimes there is "salesmanship" rather than honest opinion. It happen…
#LCSM Chat @lcsmchat
RT @lcsmchat: #lcsm https://t.co/x6pSUfu4QS
Timothy Craig Allen @TimAllenMDJD
Fine, but must get independent unbiased opinion. #lcsm https://t.co/yNLFS9SSdo
Sabin Motwani @sabinbmotwanimd
T2 the new doc should receive the first opinion also, because more information leads to more informed decisions #lcsm
#LCSM Chat @lcsmchat
RT @teamplh4lisa: T2: I would want onc 2 have info to give pros and cons of onc 1 plan and then give their treatment plan. #lcsm
Dr. David Tom Cooke @DavidCookeMD
This is a very important point. I like to understand where the other opinion is coming from. So if I disagree, I can explain why. #LCSM https://t.co/1FWvP5UNba
Brendon Stiles @BrendonStilesMD
T2. Almost always time to get 2nd opinion. Don’t be pushed into not getting one. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: Especially when seeking 2nd opinion from targeted therapy expert, I think one must share ALL info. Play fair w/2nd o…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @DavidCookeMD I like to not be biased before understanding patient. #lcsm
Andrea Borondy Kitts @findlungcancer
T2 after 2nd doc provides options & recommendations discuss similarities and differences and explore reasons why #lcsm
Danielle Pardue @Actorielle
RT @JackWestMD: T1) Def valuable to have all parties hash out pros & cons of diff strategies in tumor board setting. Not always consensus,…
Anita Figueras @scifiknitter
RT @findlungcancer: key point - many don't know about tumor board when 1st diagnosed MT @drdavidpalma: T1: they can ask for tumor board dis…
Denise Cutlip @dennycee
T2: no reason not to share. The 1d opinion dr is going to weigh all options anyhow #LCSM
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Fine, but must get independent unbiased opinion. #lcsm https://t.co/yNLFS9SSdo
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD Why do you prefer not to know the first doc's treatment suggestion? #lcsm
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: T2 the new doc should receive the first opinion also, because more information leads to more informed decisions #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: This is a very important point. I like to understand where the other opinion is coming from. So if I disagree, I…
Danielle Pardue @Actorielle
RT @BrendonStilesMD: @JFreemanDaily Another great question. As a non-medical oncologist---I say start chemo or immune first, depending upo…
Brendon Stiles @BrendonStilesMD
T2. Sometimes might tailor our words and approach to specifically address the other MD’s plan rather than to patient concerns. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Almost always time to get 2nd opinion. Don’t be pushed into not getting one. #lcsm
Danielle Pardue @Actorielle
RT @diianeee: @JFreemanDaily T1: Testing for more mutations likely saved my life. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T2 after 2nd doc provides options & recommendations discuss similarities and differences and explore reasons why #lcsm
Angie Derrick @AngieBDerrick
RT @DavidCookeMD: This is a very important point. I like to understand where the other opinion is coming from. So if I disagree, I…
Brendon Stiles @BrendonStilesMD
T2. At end, I do like to ask - “Is this what Dr. __ told you?” Gives patient chance to address differences so I can put in context. #lcsm
Timothy Craig Allen @TimAllenMDJD
2d that Same when making a diagnosis in an outside consultation. #lcsm https://t.co/X1j1LvmzfM
Denise Cutlip @dennycee
RT @DavidCookeMD: A2: I like to know the previous opinion, so I can understand where the patient is coming from in regards to frame o…
#LCSM Chat @lcsmchat
RT @dennycee: T2: no reason not to share. The 1d opinion dr is going to weigh all options anyhow #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @BrendonStilesMD Why do you prefer not to know the first doc's treatment suggestion? #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. Sometimes might tailor our words and approach to specifically address the other MD’s plan rather than to patient…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. At end, I do like to ask - “Is this what Dr. __ told you?” Gives patient chance to address differences so I can p…
Denise Cutlip @dennycee
RT @JFreemanDaily: T2: I favor giving the second opinion doc at an academic center all existing info (including treatment recommendation fr…
Andrea Borondy Kitts @findlungcancer
YES this is SO true; many docs don't listen to patients - just see them as a case MT @BrendonStilesMD: @DavidCookeMD #lcsm
Janet Freeman-Daily @JFreemanDaily
T2: Better not to seek second opinion from another doc in same practice if you want unbiased 2nd opinion, eh? #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: T1: If biopsy of lung "spot" in a previous radiation field shows only inflammation, but spot is growing--treat, or watch…
Brendon Stiles @BrendonStilesMD
@JFreemanDaily Sometimes might tailor our words and approach to specifically address the other MD’s plan rather than to patient concerns. #lcsm
A.J. BRAVE @bravemediamo
T43 off topic, how many docs would recommend e-cigs to smokers that can't quit? #LCSM #vaping
Parvez Dara MD, MBA @JediPD
2nd opinion generation is not for judging capability or ability otherwise why go there.Is to get the experience & knowledge of another #lcsm
Don Stranathan @don450sl
#LCSM On a call but following
Bob Steele @steele_bob
RT @JFreemanDaily: T2: Better not to seek second opinion from another doc in same practice if you want unbiased 2nd opinion, eh? #lcsm
Danielle Pardue @Actorielle
RT @TimAllenMDJD: And whether to rebiopsy. #lcsm https://t.co/MxzgWZkNAq
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: 2d that Same when making a diagnosis in an outside consultation. #lcsm https://t.co/X1j1LvmzfM
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T1. Have to remember shared decision making. #lcsm https://t.co/2R2rT7FVpq
#LCSM Chat @lcsmchat
RT @findlungcancer: YES this is SO true; many docs don't listen to patients - just see them as a case MT @BrendonStilesMD: @DavidCookeMD
Sabin Motwani @sabinbmotwanimd
@BrendonStilesMD There will always be some bias in yr opinions regardless of how much info you have. Important to be honest with pts about your biases #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: Better not to seek second opinion from another doc in same practice if you want unbiased 2nd opinion, eh? #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: T1 When patient gets brain mets while on targeted therapy that doesn't get into brain--radiate, or change drugs? #lcsm
Timothy Craig Allen @TimAllenMDJD
Only way really. No room for unconscious bias. Too important. #lcsm https://t.co/UfIt3zAxj4
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @JFreemanDaily Sometimes might tailor our words and approach to specifically address the other MD’s plan rather tha…
Danielle Pardue @Actorielle
RT @JackWestMD: T1) sometimes Qs of whether to prioritize a novel targeted therapy based on molecular testing over standard, proven systemi…
Flemming Rasmussen @fgrazz
@BrendonStilesMD #lcsm No, just needs same data + their pt assessment
Danielle Pardue @Actorielle
RT @JFreemanDaily: T1 Docs may disagree about whether stereotactic radiation is appropriate for treating brain mets #lcsm
Brendon Stiles @BrendonStilesMD
T2. I do prefer to know if patient has seen another lung cancer doctor. Helps with context. #lcsm
Danielle Pardue @Actorielle
RT @sabinbmotwanimd: @BrendonStilesMD There will always be some bias in yr opinions regardless of how much info you have. Important to…
#LCSM Chat @lcsmchat
@BRAVEmediaMO Please, no off topic posts during this chat. #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: T2: Better not to seek second opinion from another doc in same practice if you want unbiased 2nd opinion, eh? #lcsm
Dr. David Tom Cooke @DavidCookeMD
Vaping misnomer. NOT vapor. It has particulate matter that is harmful to the lungs. As a result, increases post-op complications. #LCSM https://t.co/rKIF2EoSFg
#LCSM Chat @lcsmchat
RT @JediPD: 2nd opinion generation is not for judging capability or ability otherwise why go there.Is to get the experience & knowledge of…
Andrea Borondy Kitts @findlungcancer
agree but need to understand the individual as an individual not as a "standard patient" MT @JediPD: #lcsm
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: @BrendonStilesMD There will always be some bias in yr opinions regardless of how much info you have. Important to…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Only way really. No room for unconscious bias. Too important. #lcsm https://t.co/UfIt3zAxj4
Janet Freeman-Daily @JFreemanDaily
@ConorSteuerMD @findlungcancer @lcsmchat Main reason not to do NGS is cost to patient when insurance doesn't cover it. #lcsm
Jukka Kelovuori @jkelovuori
RT @BRAVEmediaMO: T43 off topic, how many docs would recommend e-cigs to smokers that can't quit? #LCSM #vaping
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T2. I do prefer to know if patient has seen another lung cancer doctor. Helps with context. #lcsm
Enlightening Results @GraceCordovano
@TimAllenMDJD Perhaps better to view on pt-by-pt basis. Many pts feel drs take treatment side effects too lightly, as if normal part of cancer #lcsm
Timothy Craig Allen @TimAllenMDJD
But #HippocraticOath #lcsm https://t.co/rol9Y9pBtl
Dr. David Tom Cooke @DavidCookeMD
A2 I specifically like to know if they have seen another surgeon. #LCSM https://t.co/7RFLx462n1
Brendon Stiles @BrendonStilesMD
@sabinbmotwanimd This is true. Old saying - you go to a barber, you get a haircut! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @ConorSteuerMD @findlungcancer @lcsmchat Main reason not to do NGS is cost to patient when insurance doesn't cover it. #…
#LCSM Chat @lcsmchat
RT @GraceCordovano: @TimAllenMDJD Perhaps better to view on pt-by-pt basis. Many pts feel drs take treatment side effects too lightly,…
H. Jack West, MD @JackWestMD
T2) I prefer to know what pt has been told. Choosing among comparable chemo or immunoRx options, new rec may add confusion > benefit #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: But #HippocraticOath #lcsm https://t.co/rol9Y9pBtl
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A2 I specifically like to know if they have seen another surgeon. #LCSM https://t.co/7RFLx462n1
Janet Freeman-Daily @JFreemanDaily
@TimAllenMDJD Absolutely--always better to get independent unbiased second opinion #lcsm
Chris McAdams, M.D. @drchrismcadams
RT @DavidCookeMD: A2: I like to know the previous opinion, so I can understand where the patient is coming from in regards to frame o…
A.J. BRAVE @bravemediamo
Oops I'll stay on topic, maybe e-cig chat next time? #LCSM https://t.co/4eQU9PlGaD
Danielle Pardue @Actorielle
Hello, my friends. Couldn't run my errands any earlier today so I'm in and out but here in spirit 100%. Love! 💚 #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: T2) I prefer to know what pt has been told. Choosing among comparable chemo or immunoRx options, new rec may add confusion…
Dr. David Tom Cooke @DavidCookeMD
Unless you're bald... #LCSM https://t.co/tprFqbM9h9
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @TimAllenMDJD Absolutely--always better to get independent unbiased second opinion #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: @ConorSteuerMD @findlungcancer @lcsmchat Main reason not to do NGS is cost to patient when insurance doesn't cover it. #…
Brendon Stiles @BrendonStilesMD
@JackWestMD I actually can't imagine how confusing this must be now for patients. Many options. And new trials. #lcsm
Diane @diianeee
@BRAVEmediaMO NO! #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @GraceCordovano: @TimAllenMDJD Perhaps better to view on pt-by-pt basis. Many pts feel drs take treatment side effects too lightly,…
Danielle Pardue @Actorielle
RT @JackWestMD: T2) I prefer to know what pt has been told. Choosing among comparable chemo or immunoRx options, new rec may add confusion…
Andrea Borondy Kitts @findlungcancer
patients can figure it out with help RT @JackWestMD: T2) I prefer to know what pt has been told. #lcsm
Brendon Stiles @BrendonStilesMD
@DavidCookeMD Always one guy in the crowd....#lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: @TimAllenMDJD Absolutely--always better to get independent unbiased second opinion #lcsm
Dr. David Tom Cooke @DavidCookeMD
We'll let you know... #LCSM https://t.co/51W3uPzzbs
Danielle Pardue @Actorielle
RT @JFreemanDaily: @TimAllenMDJD Absolutely--always better to get independent unbiased second opinion #lcsm
Danielle Pardue @Actorielle
RT @BrendonStilesMD: @JackWestMD I actually can't imagine how confusing this must be now for patients. Many options. And new trials. #lcsm
Brendon Stiles @BrendonStilesMD
Almost time to move to T3. #lcsm
Bob Steele @steele_bob
Consensus is a double-edged sword. Group think was 1 of the causes of NASA's Challenger accident. Prefer Delphi process with groups. #lcsm
Dave deBronkart @ePatientDave
@BrendonStilesMD @JackWestMD Gotta be confusing for clinicians too! Especially ones who aren't astute enough to monitor tweetchats... #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @JackWestMD I actually can't imagine how confusing this must be now for patients. Many options. And new trials. #lcsm
H. Jack West, MD @JackWestMD
T2) yes, confusing. that's why it's important to focus on real diffs that matter, rather than distracting diffs of equal options. #lcsm
Danielle Pardue @Actorielle
RT @steele_bob: Consensus is a double-edged sword. Group think was 1 of the causes of NASA's Challenger accident. Prefer Delphi process wit…
Anita Figueras @scifiknitter
T2 I want the 2nd doctor to have taken the time to thoroughly & independently review records. No rubber stamp please! #LCSM
Bob Steele @steele_bob
RT @JackWestMD: T2) yes, confusing. that's why it's important to focus on real diffs that matter, rather than distracting diffs of equal op…
#LCSM Chat @lcsmchat
RT @steele_bob: Consensus is a double-edged sword. Group think was 1 of the causes of NASA's Challenger accident. Prefer Delphi process wit…
Andrea Borondy Kitts @findlungcancer
and for many docs too; I still curate for my late husband's onc RT @BrendonStilesMD: @JackWestMD confusing for patients. #lcsm
#LCSM Chat @lcsmchat
RT @ePatientDave: @BrendonStilesMD @JackWestMD Gotta be confusing for clinicians too! Especially ones who aren't astute enough to monitor…
Brendon Stiles @BrendonStilesMD
@ePatientDave @JackWestMD Critical point. Impossible for docs to keep up with EVERYTHING. Even #lcsm docs! #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: T2) yes, confusing. that's why it's important to focus on real diffs that matter, rather than distracting diffs of equal op…
Enlightening Results @GraceCordovano
T2: Second opinion should not be viewed as test for next dr. Share all information. You are gathering info to empower yourself as a pt #lcsm
A.J. BRAVE @bravemediamo
Aerosol has benefits in other applications, wouldn't say harmless, but magnitudes safer than smoking. Agree? #LCSM https://t.co/ot9Gd3lKyj
VapingIT, SPE, EEI @vapingit
RT @BRAVEmediaMO: Oops I'll stay on topic, maybe e-cig chat next time? #LCSM https://t.co/4eQU9PlGaD
Sabin Motwani @sabinbmotwanimd
@JFreemanDaily @TimAllenMDJD People will always have different levels of experience. No two people have the same, and thus there will always be some bias. #lcsm
Andrea Borondy Kitts @findlungcancer
are options every truly eequal? MT @JackWestMD: T2) , rather than distracting diffs of equal options. #lcsm
Geri Massa @GeriGerim13
#LCSM Sorry I'm late, here lurking ;-)
H. Jack West, MD @JackWestMD
T2) Tho I do review other doc notes, I try to be clear & forthright about what I agree with vs. where I have a different view #lcsm
Don Stranathan @don450sl
T2 I gave all my records to the Oncologist doing the second opinion including my Foundation One report #lcsm
Timothy Craig Allen @TimAllenMDJD
#ButTheNarrative #lcsm https://t.co/F2mZJO1CMD
Brendon Stiles @BrendonStilesMD
T3: What questions should you ask a doctor who disagrees with another doctor about your treatment? #lcsm
Dr. David Tom Cooke @DavidCookeMD
Unconscious bias is real, and all clinicians (and patients as well) should be self-aware. #LCSM https://t.co/TGairXs8st
#LCSM Chat @lcsmchat
RT @scifiknitter: T2 I want the 2nd doctor to have taken the time to thoroughly & independently review records. No rubber stamp please! #LC
Denise Cutlip @dennycee
T2: My opinion a dr who sees 2d opinion pts is confident in their skills #LCSM
#LCSM Chat @lcsmchat
RT @findlungcancer: and for many docs too; I still curate for my late husband's onc RT @BrendonStilesMD: @JackWestMD confusing for patient…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @ePatientDave @JackWestMD Critical point. Impossible for docs to keep up with EVERYTHING. Even #lcsm docs! #lcsm
Dave deBronkart @ePatientDave
@JackWestMD Hi Jack! Long time, too long! #lcsm
#LCSM Chat @lcsmchat
RT @GraceCordovano: T2: Second opinion should not be viewed as test for next dr. Share all information. You are gathering info to empower y…
Parvez Dara MD, MBA @JediPD
T1&2: There is no "standard patient" Every patient is e Pluribus Unum (Of the many ...one) therefore special & unique #lcsm
Janet Freeman-Daily @JFreemanDaily
@BRAVEmediaMO Please stay on topic for this chat. Following multi-voice discussion is hard enough while ON topic. #lcsm
Bob Steele @steele_bob
RT @JackWestMD: T2) Tho I do review other doc notes, I try to be clear & forthright about what I agree with vs. where I have a different vi…
H. Jack West, MD @JackWestMD
Absolutely. Glad to see you, even if just digitally! RT @ePatientDave: @JackWestMD Hi Jack! Long time, too long! #lcsm
Brendon Stiles @BrendonStilesMD
T3. Most important to be proactive. Don’t keep it inside and wonder later. #lcsm
Dr. David Tom Cooke @DavidCookeMD
A3: "What evidence based reasons have led you to disagree?" #LCSM https://t.co/ZomoCWBzzh
Andrea Borondy Kitts @findlungcancer
Agree RT @DavidCookeMD: Unconscious bias is real, all clinicians (and patients as well) should be self-aware. https://t.co/BrnX8IIgRc #lcsm
VapePorn @vapeporn
RT @BRAVEmediaMO: Oops I'll stay on topic, maybe e-cig chat next time? #LCSM https://t.co/4eQU9PlGaD
John from Alabama @JohnLPender
Signing off. #lcsm
Janet Freeman-Daily @JFreemanDaily
T3: Question for docs--how do you feel when patient returns from second opinion and says they don't want to do what you suggested? #lcsm
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: @JFreemanDaily @TimAllenMDJD People will always have different levels of experience. No two people have the same,…
Timothy Craig Allen @TimAllenMDJD
Ask why, and ask for the evidence based literature. #lcsm https://t.co/Ui9eex4ujP
Brendon Stiles @BrendonStilesMD
@DavidCookeMD Great question. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: T2) Tho I do review other doc notes, I try to be clear & forthright about what I agree with vs. where I have a different vi…
#LCSM Chat @lcsmchat
RT @don450sl: T2 I gave all my records to the Oncologist doing the second opinion including my Foundation One report #lcsm
Brendon Stiles @BrendonStilesMD
T3. Important starting point is whether disagreement is between specialties or within specialty. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3: What questions should you ask a doctor who disagrees with another doctor about your treatment? #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Unconscious bias is real, and all clinicians (and patients as well) should be self-aware. #LCSM https://t.co/TGairXs8st
#LCSM Chat @lcsmchat
RT @dennycee: T2: My opinion a dr who sees 2d opinion pts is confident in their skills #LCSM
Brendon Stiles @BrendonStilesMD
T3. If within specialties and drastically different, important to understand why. Sometimes ask for tie-breaker. #lcsm
#LCSM Chat @lcsmchat
RT @JediPD: T1&2: There is no "standard patient" Every patient is e Pluribus Unum (Of the many ...one) therefore special & unique #lcsm
Sabin Motwani @sabinbmotwanimd
Sometimes 2nd opinions lead to 3rd opinions..and then 4th etc..which can lead to confusion, so important to choose quality opinions #lcsm
Lisa Moran @plh4lisa
T3: Have you discussed this with your tumor board? #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @DavidCookeMD: Unconscious bias is real, and all clinicians (and patients as well) should be self-aware. #LCSM https://t.co/TGairXs8st
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. Most important to be proactive. Don’t keep it inside and wonder later. #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A3: "What evidence based reasons have led you to disagree?" #LCSM https://t.co/ZomoCWBzzh
#LCSM Chat @lcsmchat
RT @findlungcancer: Agree RT @DavidCookeMD: Unconscious bias is real, all clinicians (and patients as well) should be self-aware. https://t…
Dr. David Tom Cooke @DavidCookeMD
A3 It depends if they are embarking on a course that is not evidenced base. Then I feel worried for them. #LCSM https://t.co/d8EmU9yMOy
Danielle Pardue @Actorielle
RT @TimAllenMDJD: Ask why, and ask for the evidence based literature. #lcsm https://t.co/Ui9eex4ujP
Danielle Pardue @Actorielle
RT @JFreemanDaily: T3: Question for docs--how do you feel when patient returns from second opinion and says they don't want to do what you…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3: Question for docs--how do you feel when patient returns from second opinion and says they don't want to do what you…
Brendon Stiles @BrendonStilesMD
T3. If between specialties, ask if case was presented at multidisciplinary tumor board. What was group consensus? #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Ask why, and ask for the evidence based literature. #lcsm https://t.co/Ui9eex4ujP
Danielle Pardue @Actorielle
RT @findlungcancer: Agree RT @DavidCookeMD: Unconscious bias is real, all clinicians (and patients as well) should be self-aware. https://t…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. Important starting point is whether disagreement is between specialties or within specialty. #lcsm
Andrea Borondy Kitts @findlungcancer
T3 ask 2nd doc to discuss pros of 1st doc recommendation and cons of his/her recommendation i.e. try to see both sides #lcsm
Danielle Pardue @Actorielle
RT @DavidCookeMD: A3: "What evidence based reasons have led you to disagree?" #LCSM https://t.co/ZomoCWBzzh
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. If within specialties and drastically different, important to understand why. Sometimes ask for tie-breaker. #lcsm
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: Sometimes 2nd opinions lead to 3rd opinions..and then 4th etc..which can lead to confusion, so important to choose qua…
#LCSM Chat @lcsmchat
RT @teamplh4lisa: T3: Have you discussed this with your tumor board? #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A3 It depends if they are embarking on a course that is not evidenced base. Then I feel worried for them. #LCSM https://…
VapingIT, SPE, EEI @vapingit
@BRAVEmediaMO DAMN. #LCSM https://t.co/qBd5Iq5jM8
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. If between specialties, ask if case was presented at multidisciplinary tumor board. What was group consensus? #lc
Danielle Pardue @Actorielle
RT @DavidCookeMD: Unconscious bias is real, and all clinicians (and patients as well) should be self-aware. #LCSM https://t.co/TGairXs8st
Dr. David Tom Cooke @DavidCookeMD
RT @TimAllenMDJD: Ask why, and ask for the evidence based literature. #lcsm https://t.co/Ui9eex4ujP
Danielle Pardue @Actorielle
RT @BrendonStilesMD: T3: What questions should you ask a doctor who disagrees with another doctor about your treatment? #lcsm
Brendon Stiles @BrendonStilesMD
T3. Always good to point blank ask doctor WHY they have a different opinion. Should be able to spell out in clear terms. #lcsm
Parvez Dara MD, MBA @JediPD
T3: Reasons and Basis of any/all disagreement & What data supports that disagreement. #lcsm
H. Jack West, MD @JackWestMD
T3) I think fair to ask how 2nd opinion doc would treat differently; encourage diff perspective but accept if they genuinely concur. #lcsm
Denise Cutlip @dennycee
T3: in your experience why do you believe this is best choice? #LCSM
Dr. David Tom Cooke @DavidCookeMD
RT @JediPD: T3: Reasons and Basis of any/all disagreement & What data supports that disagreement. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T3 ask 2nd doc to discuss pros of 1st doc recommendation and cons of his/her recommendation i.e. try to see both sides…
H. Jack West, MD @JackWestMD
RT @BrendonStilesMD: T3. Always good to point blank ask doctor WHY they have a different opinion. Should be able to spell out in clear term…
Dave deBronkart @ePatientDave
RT @BrendonStilesMD: T3. Always good to point blank ask doctor WHY they have a different opinion. Should be able to spell out in clear term…
Andrea Borondy Kitts @findlungcancer
T3 what is the strength of the evidence for doc 1 option and for doc 2 option #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. Always good to point blank ask doctor WHY they have a different opinion. Should be able to spell out in clear term…
#LCSM Chat @lcsmchat
RT @JediPD: T3: Reasons and Basis of any/all disagreement & What data supports that disagreement. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: T3) I think fair to ask how 2nd opinion doc would treat differently; encourage diff perspective but accept if they genuinel…
#LCSM Chat @lcsmchat
RT @dennycee: T3: in your experience why do you believe this is best choice? #LCSM
#LCSM Chat @lcsmchat
#LCSM https://t.co/iNFjve8IYO
H. Jack West, MD @JackWestMD
T3) Hugely important to ask for explanation of why (agree or disagree w/initial opinion) & see if it makes good sense to you. #lcsm
Dave deBronkart @ePatientDave
RT @BrendonStilesMD Always good 2 point blank ask doctor WHY they have different opinion. Should be able to spell out in clear terms. #lcsm
Dr. David Tom Cooke @DavidCookeMD
A3: "How many of these have you done?" #LCSM
Janet Freeman-Daily @JFreemanDaily
@ConorSteuerMD @findlungcancer @lcsmchat Have heard from patients and clinics that say they can't get NGS panels covered. #lcsm
Brendon Stiles @BrendonStilesMD
@dennycee Good question. Sometimes experience trumps pigeon-holing patient into a group they don't belong in. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T3 what is the strength of the evidence for doc 1 option and for doc 2 option #lcsm
Andrea Borondy Kitts @findlungcancer
T3 how are doc 1 option and doc 2 option integrated with patient values and preferences; were they considered? #lcsm
Bob Steele @steele_bob
RT @JackWestMD: T3) Hugely important to ask for explanation of why (agree or disagree w/initial opinion) & see if it makes good sense to yo…
Sabin Motwani @sabinbmotwanimd
@JFreemanDaily T3 I try to understand why the opinion was different. This is why sometimes it's nice when MDs quote literature in their plans #LCSM
Brendon Stiles @BrendonStilesMD
@DavidCookeMD This is my first. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: T3) Hugely important to ask for explanation of why (agree or disagree w/initial opinion) & see if it makes good sense to yo…
#LCSM Chat @lcsmchat
RT @ePatientDave: RT @BrendonStilesMD Always good 2 point blank ask doctor WHY they have different opinion. Should be able to spell out in…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A3: "How many of these have you done?" #LCSM
Enlightening Results @GraceCordovano
T3: Ask drs to call each other to discuss their respective decisions & get back to you. Communication is key & benefits the pt's life #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @ConorSteuerMD @findlungcancer @lcsmchat Have heard from patients and clinics that say they can't get NGS panels covered…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: @dennycee Good question. Sometimes experience trumps pigeon-holing patient into a group they don't belong in. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T3 how are doc 1 option and doc 2 option integrated with patient values and preferences; were they considered? #lcsm
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: @JFreemanDaily T3 I try to understand why the opinion was different. This is why sometimes it's nice when MDs quo…
Don Stranathan @don450sl
T3 I convinced my Oncologist to let me try Xalkori for my NTRK1, thanks to social media found out it wasn't by best decision #lcsm
Brendon Stiles @BrendonStilesMD
T3. If doctor gets offended when you ask questions, should be warning flag. #lcsm https://t.co/z6556ZrTJy
#LCSM Chat @lcsmchat
RT @GraceCordovano: T3: Ask drs to call each other to discuss their respective decisions & get back to you. Communication is key & benefits…
Bob Steele @steele_bob
RT @GraceCordovano: T3: Ask drs to call each other to discuss their respective decisions & get back to you. Communication is key & benefits…
Bartomeu Massuti @bmassutis
RT @Tony_Calles: A Meta-Analysis confirms our first reported association among PD-L1 expression & KRAS mutations in lung cancer…
Timothy Craig Allen @TimAllenMDJD
RT @sabinbmotwanimd: @JFreemanDaily T3 I try to understand why the opinion was different. This is why sometimes it's nice when MDs quo…
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: T3. If doctor gets offended when you ask questions, should be warning flag. #lcsm https://t.co/z6556ZrTJy
Parvez Dara MD, MBA @JediPD
This is good! https://t.co/6MhtRfB3Lq
Faces of Lung Cancer @LungCancerFaces
You two should take this on the road... RT @BrendonStilesMD: @DavidCookeMD This is my first. #lcsm
Bob Steele @steele_bob
RT @BrendonStilesMD: T3. If doctor gets offended when you ask questions, should be warning flag. #lcsm https://t.co/z6556ZrTJy
#LCSM Chat @lcsmchat
RT @don450sl: T3 I convinced my Oncologist to let me try Xalkori for my NTRK1, thanks to social media found out it wasn't by best decision…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. If doctor gets offended when you ask questions, should be warning flag. #lcsm https://t.co/z6556ZrTJy
Dr. David Tom Cooke @DavidCookeMD
A3 Not TweetChats! The question to ask is "How many of these type of surgeries have you done?" if recommended. #LCSM https://t.co/05OScQzW4M
Timothy Craig Allen @TimAllenMDJD
RT @JackWestMD: T3) Hugely important to ask for explanation of why (agree or disagree w/initial opinion) & see if it makes good sense to yo…
Brendon Stiles @BrendonStilesMD
@GraceCordovano This is great idea - really doesn't take much time. #lcsm
Andrea Borondy Kitts @findlungcancer
T3Doc should welcome questions & opportunity to discuss all options, including patient generated options #lcsm
Brendon Stiles @BrendonStilesMD
T3. Try to get a sense of whether it is a professional disagreement – unfortunately, personal ones can also arise. #lcsm https://t.co/MXtnPS7H8E
Dr. David Tom Cooke @DavidCookeMD
When a patient tells me another doctor got upset when they asked questions, I cringe when I hear it. #LCSM https://t.co/zNNdFzCXLD
A.J. BRAVE @bravemediamo
RT @DavidCookeMD: We'll let you know... #LCSM https://t.co/51W3uPzzbs
Bob Steele @steele_bob
RT @don450sl: T3 I convinced my Oncologist to let me try Xalkori for my NTRK1, thanks to social media found out it wasn't by best decision…
#LCSM Chat @lcsmchat
RT @findlungcancer: T3Doc should welcome questions & opportunity to discuss all options, including patient generated options #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. Try to get a sense of whether it is a professional disagreement – unfortunately, personal ones can also arise.…
Anita Figueras @scifiknitter
RT @BrendonStilesMD: @JackWestMD I actually can't imagine how confusing this must be now for patients. Many options. And new trials. #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: When a patient tells me another doctor got upset when they asked questions, I cringe when I hear it. #LCSM https://t.co/…
Andrea Borondy Kitts @findlungcancer
so many docs not like you two; we are spoiled MT @DavidCookeMD: @brendonstilesMD I cringe when I hear it. #lcsm
Enlightening Results @GraceCordovano
@BrendonStilesMD And the patient in limbo in the middle, terrified of making the wrong decision or lost and confused. #lcsm
Brendon Stiles @BrendonStilesMD
T3. I wish patients and advocates could attend more tumor boards. Not always clear cut. Important to recognize. #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @findlungcancer: so many docs not like you two; we are spoiled MT @DavidCookeMD: @brendonstilesMD I cringe when I hear it. #lcsm
Geri Massa @GeriGerim13
Not a question, any advise on continuing chemo or stopping chemo, TY for your time #lcsm
#LCSM Chat @lcsmchat
@ConorSteuerMD @JFreemanDaily @findlungcancer Remember to include the hashtag #lcsm
Brendon Stiles @BrendonStilesMD
T3. Another caveat to tumor boards - no one sitting around a table really knows the patient like the doc he or she sat in front of. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: so many docs not like you two; we are spoiled MT @DavidCookeMD: @brendonstilesMD I cringe when I hear it. #lcsm
#LCSM Chat @lcsmchat
RT @GraceCordovano: @BrendonStilesMD And the patient in limbo in the middle, terrified of making the wrong decision or lost and confused. #…
Bob Steele @steele_bob
RT @BrendonStilesMD: T3. Another caveat to tumor boards - no one sitting around a table really knows the patient like the doc he or she sat…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. I wish patients and advocates could attend more tumor boards. Not always clear cut. Important to recognize. #lcsm
Diane @diianeee
@GERI1365 That's a loaded question. #lcsm
Janet Freeman-Daily @JFreemanDaily
If a doctor gets upset when you mention getting a second opinion, change docs! A good doctor will welcome a second opinion. #lcsm
Andrea Borondy Kitts @findlungcancer
I tried to get tumor board to include patients -- so much push back so disappointing MT @BrendonStilesMD: patients to tumor board #lcsm
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: T3. I wish patients and advocates could attend more tumor boards. Not always clear cut. Important to recognize. #lcsm
#LCSM Chat @lcsmchat
@GERI1365 Let's chat about this after the actual chat, OK? #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. Another caveat to tumor boards - no one sitting around a table really knows the patient like the doc he or she sat…
Anita Figueras @scifiknitter
RT @DavidCookeMD: A3: "What evidence based reasons have led you to disagree?" #LCSM https://t.co/ZomoCWBzzh
#LCSM Chat @lcsmchat
RT @JFreemanDaily: If a doctor gets upset when you mention getting a second opinion, change docs! A good doctor will welcome a second opini…
#LCSM Chat @lcsmchat
RT @findlungcancer: I tried to get tumor board to include patients -- so much push back so disappointing MT @BrendonStilesMD: patients to t…
A.J. BRAVE @bravemediamo
RT @JFreemanDaily: If a doctor gets upset when you mention getting a second opinion, change docs! A good doctor will welcome a second opini…
Dave deBronkart @ePatientDave
T3 As a #lcsm virgin I speak hesitantly, but it seems much of this comes down to the longing for certainty. Pts want it, docs want to be it,
Bob Steele @steele_bob
RT @findlungcancer: I tried to get tumor board to include patients -- so much push back so disappointing MT @BrendonStilesMD: patients to t…
Brendon Stiles @BrendonStilesMD
@findlungcancer I just did the same. Need to figure out a way for IRB/continuing ed to accept this. #lcsm
Parvez Dara MD, MBA @JediPD
Good Advice! #lcsm https://t.co/qG3ckhjY6h
Timothy Craig Allen @TimAllenMDJD
Here's a way. https://t.co/rY4I3j0oGh #lcsm https://t.co/3gfD3EVbqy
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: @findlungcancer I just did the same. Need to figure out a way for IRB/continuing ed to accept this. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JediPD: Good Advice! #lcsm https://t.co/qG3ckhjY6h
Faces of Lung Cancer @LungCancerFaces
@ePatientDave Good point. That's probably an issue across all cancer and serious disease types, I think. #lcsm
Sabin Motwani @sabinbmotwanimd
Very slippery slope, but sometimes tx decisions conflicts are based, not on evidence but cost considerations. Imp to be honest w pts #lcsm
Bob Steele @steele_bob
RT @ePatientDave: T3 As a #lcsm virgin I speak hesitantly, but it seems much of this comes down to the longing for certainty. Pts want it,…
#LCSM Chat @lcsmchat
RT @ePatientDave: T3 As a #lcsm virgin I speak hesitantly, but it seems much of this comes down to the longing for certainty. Pts want it,…
Dave deBronkart @ePatientDave
BMJ editor @tessajlrichards is an MD & was STILL excluded from her own tumor board meeting. #lcsm https://t.co/ngGKXi9c0h
Brendon Stiles @BrendonStilesMD
@TimAllenMDJD I love this. Tumor board of the future. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Here's a way. https://t.co/rY4I3j0oGh #lcsm https://t.co/3gfD3EVbqy
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: Very slippery slope, but sometimes tx decisions conflicts are based, not on evidence but cost considerations. Imp to b…
Andrea Borondy Kitts @findlungcancer
T3 there is always the traditional question -what would you do? what would you recommend for loved one & why #lcsm
Timothy Craig Allen @TimAllenMDJD
Speak up! All friends here. #lcsm https://t.co/5Z399LAx70
Dave deBronkart @ePatientDave
RT @LungCancerFaces: @ePatientDave Good point. That's probably an issue across all cancer and serious disease types, I think. #lcsm
Janet Freeman-Daily @JFreemanDaily
@ePatientDave Not just a need for certainty. Treatment options are changing fast in #lungcancer, and not all docs keep current. #lcsm
Enlightening Results @GraceCordovano
Yes!! #Patients and #caregivers should be included as a regular part of the medical and healthcare ecosystem. #MedEd #lcsm #PtExp https://t.co/45FnMDsgrD
#LCSM Chat @lcsmchat
RT @LungCancerFaces: @ePatientDave Good point. That's probably an issue across all cancer and serious disease types, I think. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @sabinbmotwanimd: Very slippery slope, but sometimes tx decisions conflicts are based, not on evidence but cost considerations. Imp to b…
#LCSM Chat @lcsmchat
RT @ePatientDave: BMJ editor @tessajlrichards is an MD & was STILL excluded from her own tumor board meeting. #lcsm https://t.co/ngGKXi9c0h
Dave deBronkart @ePatientDave
Yes; this illustrates the longing for certainty rearing its head in a way that impedes actual care. Huge cultural obstacle. #lcsm https://t.co/NRY9Ce7ok9
Timothy Craig Allen @TimAllenMDJD
RT @BrendonStilesMD: @TimAllenMDJD I love this. Tumor board of the future. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T3 there is always the traditional question -what would you do? what would you recommend for loved one & why #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @ePatientDave Not just a need for certainty. Treatment options are changing fast in #lungcancer, and not all docs keep c…
Brendon Stiles @BrendonStilesMD
@JFreemanDaily @ePatientDave Easy to get mired in habit and not keep on learning. #lcsm
#LCSM Chat @lcsmchat
RT @GraceCordovano: Yes!! #Patients and #caregivers should be included as a regular part of the medical and healthcare ecosystem.…
Lisa Moran @plh4lisa
With new dx and not familiar with lc, it's hard to know any questions to ask. #lcsm
Brendon Stiles @BrendonStilesMD
T3. Beware the Dunning-Kruger effect. Look it up! #lcsm
Andrea Borondy Kitts @findlungcancer
T3 here's a hospital that does allow patients at tumor boards, I talked to program navigator #awesome job https://t.co/zP0mfqRD3s #lcsm
Timothy Craig Allen @TimAllenMDJD
Yes. Ultimately the patient must trust someone. Let it not be Google. #lcsm https://t.co/5Z399LAx70
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD @findlungcancer I asked to join a #lungcancer tumor board as a patient advocate, and was told NO, supposedly for HIPAA concerns. #LCSM
Dave deBronkart @ePatientDave
Totally agreed! IMO this *adds* to the complications caused by the longing for certainty. One reason why the longing causes shortfall. #lcsm https://t.co/VVbpEZCjFp
Faces of Lung Cancer @LungCancerFaces
@BrendonStilesMD More prevalent in the community oncology setting (not our Jack West, of course!)? @JFreemanDaily @ePatientDave #lcsm
Dr. David Tom Cooke @DavidCookeMD
Que? #LCSM https://t.co/eKrRrzapFz
Parvez Dara MD, MBA @JediPD
A good doctor Knowledgeable Experienced Reasons Critically thinks Logically explains w/simplicity Honors 2nd opinion Leaves Ego home #lcsm
Andrea Borondy Kitts @findlungcancer
https://t.co/vI00zGrRGJ RT @BrendonStilesMD: T3. Beware the Dunning-Kruger effect. Look it up! #lcsm
Flemming Rasmussen @fgrazz
@BrendonStilesMD T3 #lcsm If diff type of specialty could be a long list. 2 would be their 5 yr outcome on perceived similar diagnosis & $
#LCSM Chat @lcsmchat
RT @ePatientDave: Yes; this illustrates the longing for certainty rearing its head in a way that impedes actual care. Huge cultural o…
#LCSM Chat @lcsmchat
RT @teamplh4lisa: With new dx and not familiar with lc, it's hard to know any questions to ask. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T3. Beware the Dunning-Kruger effect. Look it up! #lcsm
Dr. David Tom Cooke @DavidCookeMD
The last one.. no guarantees. #LCSM https://t.co/jK3upujEs0
Andrea Borondy Kitts @findlungcancer
RT @JediPD: A good doctor Knowledgeable Experienced Reasons Critically thinks Logically explains w/simplicity Honors 2nd opinion Leaves Ego…
#LCSM Chat @lcsmchat
RT @findlungcancer: T3 here's a hospital that does allow patients at tumor boards, I talked to program navigator #awesome job https://t.co/…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Yes. Ultimately the patient must trust someone. Let it not be Google. #lcsm https://t.co/5Z399LAx70
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @BrendonStilesMD @findlungcancer I asked to join a #lungcancer tumor board as a patient advocate, and was told NO,…
#LCSM Chat @lcsmchat
RT @ePatientDave: Totally agreed! IMO this *adds* to the complications caused by the longing for certainty. One reason why the longin…
Dave deBronkart @ePatientDave
Is there a starter list of questions, somewhere in the #lcsm world? Great opportunity to help the newly dx'd. https://t.co/38NAqlazdS
#LCSM Chat @lcsmchat
RT @LungCancerFaces: @BrendonStilesMD More prevalent in the community oncology setting (not our Jack West, of course!)? @JFreemanDaily @ePa
Parvez Dara MD, MBA @JediPD
@BrendonStilesMD Especially the trough! #lcsm
#LCSM Chat @lcsmchat
RT @JediPD: A good doctor Knowledgeable Experienced Reasons Critically thinks Logically explains w/simplicity Honors 2nd opinion Leaves Ego…
Brendon Stiles @BrendonStilesMD
Here it is. #lcsm https://t.co/YkClCzxCOt
#LCSM Chat @lcsmchat
RT @findlungcancer: https://t.co/vI00zGrRGJ RT @BrendonStilesMD: T3. Beware the Dunning-Kruger effect. Look it up! #lcsm
#LCSM Chat @lcsmchat
RT @fgrazz: @BrendonStilesMD T3 #lcsm If diff type of specialty could be a long list. 2 would be their 5 yr outcome on perceived similar d…
#LCSM Chat @lcsmchat
RT @ePatientDave: Is there a starter list of questions, somewhere in the #lcsm world? Great opportunity to help the newly dx'd. https://t.c…
Brendon Stiles @BrendonStilesMD
Moving to T4 soon. #lcsm
Timothy Craig Allen @TimAllenMDJD
Under HIPPA, you control access to your info. #lcsm https://t.co/SYsBruNy3v
Dr. David Tom Cooke @DavidCookeMD
Oh ok. This is an epidemic in: 1) Healthcare, 2) Silicon Valley, 3) Washington DC. #LCSM https://t.co/63fsOUPh2B
Andrea Borondy Kitts @findlungcancer
yes drinking from fire hose & in shock RT @teamplh4lisa: With new dx and not familiar with lc, it's hard to know any questions to ask. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Here it is. #lcsm https://t.co/YkClCzxCOt
Janet Freeman-Daily @JFreemanDaily
@ePatientDave Several #lungcancer advocacy organizations have lists of questions for patients to ask docs. #lcsm
Brendon Stiles @BrendonStilesMD
T4. What resources can patients use to share in their own decision making if different treatment options exist? #lcsm
#LCSM Chat @lcsmchat
@ePatientDave Pulling together resources for this as we type. #lcsm
Brendon Stiles @BrendonStilesMD
T4. #lcsm is a great place to start. Our group is here and always happy to provide guidance and experience. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @findlungcancer: yes drinking from fire hose & in shock RT @teamplh4lisa: With new dx and not familiar with lc, it's hard to know any qu…
Dave deBronkart @ePatientDave
@tessajlrichards look! Precedent! #lcsm https://t.co/kIMv78XQgR
Brendon Stiles @BrendonStilesMD
T4. Do ask about local tumor board and ask if alternative options were discussed. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @ePatientDave Several #lungcancer advocacy organizations have lists of questions for patients to ask docs. #lcsm
Andrea Borondy Kitts @findlungcancer
T4 the #lcsm community, other patients & patient advocates,
Dr. David Tom Cooke @DavidCookeMD
A4 The NCI patient portal: https://t.co/lO2niahmJb #LCSM https://t.co/hHioObwT9u
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. What resources can patients use to share in their own decision making if different treatment options exist? #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @findlungcancer: T4 the #lcsm community, other patients & patient advocates,
Janet Freeman-Daily @JFreemanDaily
T4: NCCN Guidelines for patients explain diagnostic procedures and treatment options based on staging https://t.co/rxLWK1daSd #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. #lcsm is a great place to start. Our group is here and always happy to provide guidance and experience. #lcsm
A.J. BRAVE @bravemediamo
List may need updating. https://t.co/sMfApFxP2y
Anita Figueras @scifiknitter
RT @BrendonStilesMD: T3. If doctor gets offended when you ask questions, should be warning flag. #lcsm https://t.co/z6556ZrTJy
Timothy Craig Allen @TimAllenMDJD
RT @DavidCookeMD: A4 The NCI patient portal: https://t.co/lO2niahmJb #LCSM https://t.co/hHioObwT9u
Brendon Stiles @BrendonStilesMD
T4. Totally fair to ask for literature/reviews on topic. Technical, but sometimes shed light on complex decision making. Be smart. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. Do ask about local tumor board and ask if alternative options were discussed. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T4 the #lcsm community, other patients & patient advocates,
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A4 The NCI patient portal: https://t.co/lO2niahmJb #LCSM https://t.co/hHioObwT9u
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T4: NCCN Guidelines for patients explain diagnostic procedures and treatment options based on staging https://t.co/rxLWK…
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T4: NCCN Guidelines for patients explain diagnostic procedures and treatment options based on staging https://t.co/rxLWK…
Brendon Stiles @BrendonStilesMD
T4. NCCN guidelines also available online. Make sure you aren’t too far off recommendations. #lcsm https://t.co/RbeD96VdAF
Andrea Borondy Kitts @findlungcancer
T4 https://t.co/OYVIHXZh9y, ALA, Free to Breathe, NCCN, Bonnie Addario Foundation, Chris Draft Foundation and many others #lcsm
Dave deBronkart @ePatientDave
@JFreemanDaily Are they aggregated somewhere, with good SEO so newbies find 'em? Is there a https://t.co/FHj8gSmu1o like a https://t.co/RcPtwdlD9C?? #lcsm
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: T4. Do ask about local tumor board and ask if alternative options were discussed. #lcsm
Don Stranathan @don450sl
T4 I learned a lot from my Foundation One report, FDA approved treatments and clinical trials for my alterations #lcsm
Faces of Lung Cancer @LungCancerFaces
T4: Wait, you mean we can't just call Janet? @JFreemanDaily #lcsm
H. Jack West, MD @JackWestMD
T4) I'm biased, but there's great info from experts on lung cancer & some other cancers at @cancerGRACE site (https://t.co/Y7RVXuj9rC) #lcsm
Andrea Borondy Kitts @findlungcancer
RT @don450sl: T4 I learned a lot from my Foundation One report, FDA approved treatments and clinical trials for my alterations #lcsm
Lisa Moran @plh4lisa
There's lots of info online, but don't know off list of questions per each type of #lungcancer. #lcsm https://t.co/RkagJvEHrg
Andrea Borondy Kitts @findlungcancer
RT @JackWestMD: T4) I'm biased, but there's great info from experts on lung cancer & some other cancers at @cancerGRACE site (https://t.co/…
Bob Steele @steele_bob
Prefer to review all the facts & options available. But I use weighted algorithms to pick dinner to make dinner choices. Stats geek! #lcsm
Dave deBronkart @ePatientDave
RT @DavidCookeMD: A4 The NCI patient portal: https://t.co/lO2niahmJb #LCSM https://t.co/hHioObwT9u
Dr. David Tom Cooke @DavidCookeMD
Yes, @CaliforniaLung @LungAssociation #LCSM https://t.co/WFotyTTudf
Brendon Stiles @BrendonStilesMD
T4. #LungCancer advocacy groups like @freetobreathe and others offer great literature and support networks. #lcsm
Sabin Motwani @sabinbmotwanimd
T4. ASCO answers guides are helpful https://t.co/I4JepLTLci #LCSM
Angie Derrick @AngieBDerrick
RT @findlungcancer: T3 here's a hospital that does allow patients at tumor boards, I talked to program navigator #awesome job https://t.co/…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. Totally fair to ask for literature/reviews on topic. Technical, but sometimes shed light on complex decision mak…
Tania Aguirre @tataguirre
RT @JFreemanDaily: T4: NCCN Guidelines for patients explain diagnostic procedures and treatment options based on staging https://t.co/rxLWK…
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. NCCN guidelines also available online. Make sure you aren’t too far off recommendations. #lcsm https://t.co/RbeD…
#LCSM Chat @lcsmchat
RT @findlungcancer: T4 https://t.co/OYVIHXZh9y, ALA, Free to Breathe, NCCN, Bonnie Addario Foundation, Chris Draft Foundation and many othe…
#LCSM Chat @lcsmchat
RT @ePatientDave: @JFreemanDaily Are they aggregated somewhere, with good SEO so newbies find 'em? Is there a…
Andrea Borondy Kitts @findlungcancer
how do newly diagnosed find this info - we are seasoned. It took me 3 months to find Inspire #lcsm
Janet Freeman-Daily @JFreemanDaily
@ePatientDave @ePatientDave check out https://t.co/39i0y9oxgJ #LCSM
Bob Steele @steele_bob
RT @sabinbmotwanimd: T4. ASCO answers guides are helpful https://t.co/I4JepLTLci #LCSM
Tania Aguirre @tataguirre
RT @BrendonStilesMD: T4. Totally fair to ask for literature/reviews on topic. Technical, but sometimes shed light on complex decision mak…
#LCSM Chat @lcsmchat
There's an https://t.co/qF4DgI1xgv #lcsm https://t.co/XBfZe7KbZK
Bin Xu @BinXu16
RT @BrendonStilesMD: T4. NCCN guidelines also available online. Make sure you aren’t too far off recommendations. #lcsm https://t.co/RbeD…
Brendon Stiles @BrendonStilesMD
T4. Doctors should also do CME, attend conferences, and stay fresh on literature. Helps their patients. #lcsm
#LCSM Chat @lcsmchat
RT @don450sl: T4 I learned a lot from my Foundation One report, FDA approved treatments and clinical trials for my alterations #lcsm
Denise Cutlip @dennycee
T4: other patients experience, nurse navigators, patient navigators #LCSM
Brendon Stiles @BrendonStilesMD
T4. Many cancer centers have patient groups and/or advocacy organizations. #lcsm
Bob Steele @steele_bob
RT @BrendonStilesMD: T4. #LungCancer advocacy groups like @freetobreathe and others offer great literature and support networks. #lcsm
Brendon Stiles @BrendonStilesMD
@dennycee Great resources. #lcsm
Faces of Lung Cancer @LungCancerFaces
2nd that RT @JackWestMD: T4) I'm biased, but there's great info from experts on lung cancer & some other cancers at @cancerGRACE site #lcsm
VeryLegal&VeryCool, LLC @Tricia_Braun
RT @lcsmchat: There's an https://t.co/qF4DgI1xgv #lcsm https://t.co/XBfZe7KbZK
Lisa Moran @plh4lisa
CME? Continued Medical Education? #lcsm https://t.co/Nzq61NAMlE
#LCSM Chat @lcsmchat
RT @JackWestMD: T4) I'm biased, but there's great info from experts on lung cancer & some other cancers at @cancerGRACE site (https://t.co/…
Angie Derrick @AngieBDerrick
RT @JackWestMD: T4) I'm biased, but there's great info from experts on lung cancer & some other cancers at @cancerGRACE site (https://t.co/…
Andrea Borondy Kitts @findlungcancer
T4 definitely need outreach efforts to underserved populations - many don't even get basic genomic testing and only offered hospice #lcsm
#LCSM Chat @lcsmchat
RT @teamplh4lisa: There's lots of info online, but don't know off list of questions per each type of #lungcancer. #lcsm https://t.co/RkagJv…
Janet Freeman-Daily @JFreemanDaily
@LungCancerFaces No Deana. Just no. #lcsm T4: Wait, you mean we can't just call Janet? https://t.co/WhCYRpwsUK
#LCSM Chat @lcsmchat
RT @steele_bob: Prefer to review all the facts & options available. But I use weighted algorithms to pick dinner to make dinner choices. St…
Enlightening Results @GraceCordovano
T4: Patients need #transparency & understanding of treatment costs to make educated decision about care. Financial toxicity is real. #lcsm
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. #LungCancer advocacy groups like @freetobreathe and others offer great literature and support networks. #lcsm
H. Jack West, MD @JackWestMD
Just be careful to distinguish between proven & "you might try" options. RT @don450sl: T4 I learned a lot from Foundation One report #lcsm
Brendon Stiles @BrendonStilesMD
@teamplh4lisa Yes! Better than Continued Misinformation Everywhere. #lcsm
Myeloma Teacher @MyelomaTeacher
@JFreemanDaily @ePatientDave Great topic Janet! #lcsm #mmsm
Andrea Borondy Kitts @findlungcancer
that's what I do MT @JFreemanDaily: @LungCancerFaces No Deana. Just no. #lcsm T4: Wait, you mean we can't just call Janet?
Don Stranathan @don450sl
T4 I moderate a targeted therapy and immunotherapy group on Facebook, I learn a lot from other patients. #lcsm
Denise Cutlip @dennycee
No serious bias. Good resource. https://t.co/GEx9AhG7P4
Anita Figueras @scifiknitter
RT @sabinbmotwanimd: Very slippery slope, but sometimes tx decisions conflicts are based, not on evidence but cost considerations. Imp to b…
Janet Freeman-Daily @JFreemanDaily
T4: @LUNGevity's list of questions for #lungcancer patients to ask their doctor: https://t.co/WVy7DEP3a1 #lcsm
Brendon Stiles @BrendonStilesMD
@findlungcancer @JFreemanDaily @LungCancerFaces Shoot...I would even call these three. #lcsm
Bob Steele @steele_bob
RT @don450sl: T4 I moderate a targeted therapy and immunotherapy group on Facebook, I learn a lot from other patients. #lcsm
Faces of Lung Cancer @LungCancerFaces
@findlungcancer Me, too. Convenient. Reliable. What's not to like? @JFreemanDaily #lcsm
Dave deBronkart @ePatientDave
YAY!!!! Freakin yay!!!! #lcsm https://t.co/BCzBiAauEh
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: T4. ASCO answers guides are helpful https://t.co/I4JepLTLci #LCSM
#LCSM Chat @lcsmchat
RT @findlungcancer: how do newly diagnosed find this info - we are seasoned. It took me 3 months to find Inspire #lcsm
Parvez Dara MD, MBA @JediPD
@BrendonStilesMD A Physician is like a constant chronic gardener ... turning over new information (soil) to help the flowers (patients) bloom #lcsm
Brendon Stiles @BrendonStilesMD
Almost time to wind the chat down. This has been another incredible discussion. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @ePatientDave @ePatientDave check out https://t.co/39i0y9oxgJ #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. Doctors should also do CME, attend conferences, and stay fresh on literature. Helps their patients. #lcsm
#LCSM Chat @lcsmchat
RT @dennycee: T4: other patients experience, nurse navigators, patient navigators #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: T4. Many cancer centers have patient groups and/or advocacy organizations. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: 2nd that RT @JackWestMD: T4) I'm biased, but there's great info from experts on lung cancer & some other cancers at @c
Myeloma Teacher @MyelomaTeacher
RT @don450sl: T4 I moderate a targeted therapy and immunotherapy group on Facebook, I learn a lot from other patients. #lcsm
#LCSM Chat @lcsmchat
RT @findlungcancer: T4 definitely need outreach efforts to underserved populations - many don't even get basic genomic testing and only off…
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: T4. Many cancer centers have patient groups and/or advocacy organizations. #lcsm
Angie Derrick @AngieBDerrick
RT @JFreemanDaily: T4: @LUNGevity's list of questions for #lungcancer patients to ask their doctor: https://t.co/WVy7DEP3a1 #lcsm
#LCSM Chat @lcsmchat
RT @GraceCordovano: T4: Patients need #transparency & understanding of treatment costs to make educated decision about care. Financial toxi…
Parvez Dara MD, MBA @JediPD
Enjoyed the #lcsm chat Thanks to @BrendonStilesMD for moderating and the quiet @JackWestMD Have a good night, All.
#LCSM Chat @lcsmchat
RT @JackWestMD: Just be careful to distinguish between proven & "you might try" options. RT @don450sl: T4 I learned a lot from Foundation O…
#LCSM Chat @lcsmchat
RT @don450sl: T4 I moderate a targeted therapy and immunotherapy group on Facebook, I learn a lot from other patients. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T4: @LUNGevity's list of questions for #lungcancer patients to ask their doctor: https://t.co/WVy7DEP3a1 #lcsm
Brendon Stiles @BrendonStilesMD
Please share your closing thoughts! #lcsm
Enlightening Results @GraceCordovano
T4: Attend patient summits. @CancerResearch hosts an amazing immunotherapy patient summit that's free #lcsm https://t.co/RGmnJIvgZW
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T4: @LUNGevity's list of questions for #lungcancer patients to ask their doctor: https://t.co/WVy7DEP3a1 #lcsm
Janet Freeman-Daily @JFreemanDaily
T4: SURVIVEiT Lung also has a list of questions for #lungcancer patients to ask oncologists: https://t.co/bY3ZUUKTK2 #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @GraceCordovano: T4: Patients need #transparency & understanding of treatment costs to make educated decision about care. Financial toxi…
Dr. David Tom Cooke @DavidCookeMD
Thanks @BrendonStilesMD Great Job. Thanks #LCSM community. Stay strong. Advocate for your healthcare!...
A.J. BRAVE @bravemediamo
I've certainly enjoyed and learned, thanks hosting #LCSM https://t.co/woWdGJ37YB
#LCSM Chat @lcsmchat
RT @JediPD: @BrendonStilesMD A Physician is like a constant chronic gardener ... turning over new information (soil) to help th…
#LCSM Chat @lcsmchat
RT @GraceCordovano: T4: Attend patient summits. @CancerResearch hosts an amazing immunotherapy patient summit that's free #lcsm https://t…
Dave deBronkart @ePatientDave
RT @lcsmchat: @ePatientDave Pulling together resources for this as we type. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @BrendonStilesMD: T4. Many cancer centers have patient groups and/or advocacy organizations. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T4: SURVIVEiT Lung also has a list of questions for #lungcancer patients to ask oncologists: https://t.co/bY3ZUUKTK2 #lc
Don Stranathan @don450sl
Great chat, thanks everyone #lcsm
Myeloma Teacher @MyelomaTeacher
RT @GraceCordovano: T4: Attend patient summits. @CancerResearch hosts an amazing immunotherapy patient summit that's free #lcsm https://t…
Brendon Stiles @BrendonStilesMD
My advice: Don't be scared or disappointed by different opinions. Ask questions. Talk to others. Educate yourself. #lcsm
Dave deBronkart @ePatientDave
LARGE yay you! #lcsm Make it easy for people in need to find new resources when everything is on the line. And spread the word! https://t.co/T5ozY53ISe
Andrea Borondy Kitts @findlungcancer
CT advocate for yourself, ask for help others, get 2nd opinion, know your options, share all info including values & preferences #lcsm
H. Jack West, MD @JackWestMD
Thanks, @BrendonStilesMD for moderating, & to everyone else for contributing to great discussion! #lcsm
Dr. David Tom Cooke @DavidCookeMD
... #LungCancerScreening an Essential Benefit in #ACA. #LungCancer can be pre-existing condition. No lifetime caps for cost of Rx! #LCSM
Timothy Craig Allen @TimAllenMDJD
Thank you. It was a privilege to participate. #lcsm https://t.co/HL3amV1b7A
Myeloma Teacher @MyelomaTeacher
RT @BrendonStilesMD: My advice: Don't be scared or disappointed by different opinions. Ask questions. Talk to others. Educate yourself. #lc
Lisa Moran @plh4lisa
Thanks for a good chat with info I could use in the future. #lcsm
Andrea Borondy Kitts @findlungcancer
Agree great job RT @drCarterHarris: Thanks @BrendonStilesMD! Thought provoking discussion and great moderation #lcsm
Janet Freeman-Daily @JFreemanDaily
T4: Look for online patient communities that specialize in genomic mutations, like ROS1ders https://t.co/HviHh067Wy #lcsm
Lung Cancer Hawaii @LungCancerHawai
Thanks all. I'm grumpy cat today & you all made me happy to be part of this community ... again! <3 you all #lcsm
Bob Steele @steele_bob
RT @TimAllenMDJD: Thank you. It was a privilege to participate. #lcsm https://t.co/HL3amV1b7A
Brendon Stiles @BrendonStilesMD
Patients don't always fall into perfect groups. Sometimes real choices exist. #lcsm https://t.co/2GIjo1bBXq
Myeloma Teacher @MyelomaTeacher
Good advice for any dx! #lcsm #mmsm https://t.co/l7GV5Xqqjr
Faces of Lung Cancer @LungCancerFaces
Thanks to @BrendonStilesMD for the great topic and moderation tonight. Always a pleasure to "see" our community. #lcsm
Janet Freeman-Daily @JFreemanDaily
@LungCancerHawai What will you do for a Twitter handle after you move? #lcsm
American Lung Assoc. @LungAssociation
Thanks everyone, great info! #LCSM
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: My advice: Don't be scared or disappointed by different opinions. Ask questions. Talk to others. Educate yourself. #lc
Andrea Borondy Kitts @findlungcancer
we're happy you are here too MT @LungCancerHawai: you all made me happy to be part of this community ... again! <3 you all #lcsm
Dr. David Tom Cooke @DavidCookeMD
Exactly how can one be grumpy when living in Hawaii? #LCSM https://t.co/0BgIKIrFt4
#LCSM Chat @lcsmchat
RT @findlungcancer: CT advocate for yourself, ask for help others, get 2nd opinion, know your options, share all info including values & pr…
Lung Cancer Hawaii @LungCancerHawai
RT @DavidCookeMD: ... #LungCancerScreening an Essential Benefit in #ACA. #LungCancer can be pre-existing condition. No lifetime caps for c…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: ... #LungCancerScreening an Essential Benefit in #ACA. #LungCancer can be pre-existing condition. No lifetime caps for c…
Bob Steele @steele_bob
RT @LungCancerHawai: Thanks all. I'm grumpy cat today & you all made me happy to be part of this community ... again! <3 you all #lcsm
Sabin Motwani @sabinbmotwanimd
Very few decisions in life are black and white. If you find someone who can describe gray, and explain why the color is 1/2 #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T4: Look for online patient communities that specialize in genomic mutations, like ROS1ders https://t.co/HviHh067Wy #l
Dave deBronkart @ePatientDave
Otherwise known as Trump Syndrome. (Seriously.) #lcsm https://t.co/SkvMtzH2DJ
#LCSM Chat @lcsmchat
RT @BrendonStilesMD: Patients don't always fall into perfect groups. Sometimes real choices exist. #lcsm https://t.co/2GIjo1bBXq
Brendon Stiles @BrendonStilesMD
Ask your doctors....WHY? #lcsm
Andrea Borondy Kitts @findlungcancer
Gr8 question. Where are you going? RT @JFreemanDaily: @LungCancerHawai What will you do for a Twitter handle after you move? #lcsm
Lung Cancer Hawaii @LungCancerHawai
When one is packing to leave Hawaii :-( RT @DavidCookeMD: Exactly how can one be grumpy when living in Hawaii? #LCSM https://t.co/Ny6D0epk2t
Dr. David Tom Cooke @DavidCookeMD
RT @LungCancerHawai: When one is packing to leave Hawaii :-( RT @DavidCookeMD: Exactly how can one be grumpy when living in Hawaii? #LCSM h…
A.J. BRAVE @bravemediamo
Thanks Lung, best regards to Harold! https://t.co/Nn4wXJeQgQ
John @vaping4lifer
@DavidCookeMD #propaganda by the #antz #bigpharma #puppets #LCSM another #fakenews tweet
Janet Freeman-Daily @JFreemanDaily
CT Cancer docs may disagree. Important for patients to ask questions and understand their reasons. Be your own best advocate! #lcsm
Faces of Lung Cancer @LungCancerFaces
@LungCancerHawai Same here. Gonna hit the catnip right now. #lcsm
Dr. David Tom Cooke @DavidCookeMD
I say keep the handle! #LCSM https://t.co/sJLv3yvlWY
Brendon Stiles @BrendonStilesMD
It was valuable to see how many areas of "differences" exist in T1. Not always clear cut. #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @JFreemanDaily: CT Cancer docs may disagree. Important for patients to ask questions and understand their reasons. Be your own best advo…
Dave deBronkart @ePatientDave
Or, as we said back in the hippie / Jefferson Airplane era: "Feed your head, man!" #truth #lcsm https://t.co/HBXidKhciW
Andrea Borondy Kitts @findlungcancer
is your new destination a secret? @LungCancerHawai @DavidCookeMD #lcsm
Maggie Rogers @magthenomad
RT @JFreemanDaily: T4: Look for online patient communities that specialize in genomic mutations, like ROS1ders https://t.co/HviHh067Wy #l
Sabin Motwani @sabinbmotwanimd
2/2 difficult to characterize and why sometimes it appears more black than white and vice versa, and they explain this clearly to you..#lcsm
Bob Steele @steele_bob
RT @MyelomaTeacher: Good advice for any dx! #lcsm #mmsm https://t.co/l7GV5Xqqjr
Brendon Stiles @BrendonStilesMD
@LungCancerFaces @LungCancerHawai I would like to see you two all catnipped up. #lcsm
Lung Cancer Hawaii @LungCancerHawai
Hubby transferring to CDMRP! (Ft Detrick) RT @findlungcancer: Gr8 question. Where are you going? #lcsm
Andrea Borondy Kitts @findlungcancer
U R in my generation MT @ePatientDave: hippie / Jefferson Airplane era: "Feed your head, man!" #truth https://t.co/LZXrRxybpr #lcsm
Brendon Stiles @BrendonStilesMD
Thanks to everyone for participating and helping others. It does make a difference. #lcsm
Janet Freeman-Daily @JFreemanDaily
Thanks to @BrendonStilesMD for a great topic and groovy moderating. And thanks to everyone for joining #LCSM Chat!
Dr. David Tom Cooke @DavidCookeMD
RT @BrendonStilesMD: Thanks to everyone for participating and helping others. It does make a difference. #lcsm
#LCSM Chat @lcsmchat
@vaping4lifer @DavidCookeMD Please stop. You're misusing a hashtag for people who have lung cancer. Vaping isn't our issue. Please, please stop. Wrong audience. #lcsm
Lung Cancer Hawaii @LungCancerHawai
@JFreemanDaily Keeping the twitter handle. Hawaii #lungcancerpeople still need me as an advocate. #lcsm
Brendon Stiles @BrendonStilesMD
Hopefully we can all agree on one thing - this is a great community. I love hearing from all of you. Thanks and good night! #lcsm
Faces of Lung Cancer @LungCancerFaces
@BrendonStilesMD You are seriously bad. Very bad. You must be punished. #lcsm
Sabin Motwani @sabinbmotwanimd
Great discussion tonight #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @BrendonStilesMD: Hopefully we can all agree on one thing - this is a great community. I love hearing from all of you. Thanks and good…
Janet Freeman-Daily @JFreemanDaily
@MyelomaTeacher @ePatientDave Hi Cynthia! @BrendonStilesMD gets the credit for tonight's #LCSM topic
Dr. David Tom Cooke @DavidCookeMD
RT @LungCancerHawai: @JFreemanDaily Keeping the twitter handle. Hawaii #lungcancerpeople still need me as an advocate. #lcsm
Lung Cancer Hawaii @LungCancerHawai
You may have already seen that ... and it ain't pretty! #lcsm https://t.co/omFOdgLoKA
Andrea Borondy Kitts @findlungcancer
@lungcancerMD? RT @LungCancerHawai: @JFreemanDaily Keeping the twitter handle. Hawaii #lungcancerpeople still need me as an advocate. #lcsm
Janet Freeman-Daily @JFreemanDaily
@BrendonStilesMD @findlungcancer @LungCancerFaces You've earned your brownie points for the month! #lcsm
Brendon Stiles @BrendonStilesMD
@LungCancerFaces Some suggestions... https://t.co/kRHHTQgKBH #lcsm
Bob Steele @steele_bob
I always learn something every time I sit in on a Lung Cancer Social Media chat session! Good night all. Look 4ward to the next chat #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @steele_bob: I always learn something every time I sit in on a Lung Cancer Social Media chat session! Good night all. Look 4ward to the…
Lung Cancer Sux @LungCancerSux
RT @BrendonStilesMD: Hopefully we can all agree on one thing - this is a great community. I love hearing from all of you. Thanks and good…
KiwiDigitalPresence @kiwidigitalpres
RT @steele_bob: I always learn something every time I sit in on a Lung Cancer Social Media chat session! Good night all. Look 4ward to the…
Denise Cutlip @dennycee
Great chat. Thank you @BrendonStilesMD #LCSM
Lung Cancer Hawaii @LungCancerHawai
@DavidCookeMD I'm gonna keep the handle. #lungcancerpeople in Hawaii need me to advocate for them, so I'll keep doing it! #lcsm
Janet Freeman-Daily @JFreemanDaily
@findlungcancer @LungCancerHawai Now THERE'S an ambiguous handle ... #lcsm
Andrea Borondy Kitts @findlungcancer
RT @LungCancerFaces: @BrendonStilesMD You are seriously bad. Very bad. You must be punished. #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @LungCancerHawai: @DavidCookeMD I'm gonna keep the handle. #lungcancerpeople in Hawaii need me to advocate for them, so I'll keep doing…
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: Hopefully we can all agree on one thing - this is a great community. I love hearing from all of you. Thanks and good…
Andrea Borondy Kitts @findlungcancer
RT @JFreemanDaily: Thanks to @BrendonStilesMD for a great topic and groovy moderating. And thanks to everyone for joining #LCSM Chat!
Lung Cancer Sux @LungCancerSux
RT @BrendonStilesMD: My advice: Don't be scared or disappointed by different opinions. Ask questions. Talk to others. Educate yourself. #lc
Brendon Stiles @BrendonStilesMD
Good night! #lcsm
Bob Steele @steele_bob
Gene mutation commonalities are chipping away at the silo cancer type perspective! #lcsm
Anita Figueras @scifiknitter
@BrendonStilesMD I came away from T1 wondering if there ever is a situation without potential for disagreement 😮 #lcsm
Lung Cancer Hawaii @LungCancerHawai
@findlungcancer @JFreemanDaily HA! if that one's not taken I just might grab it. "I'm not a doctor but I play one on Twitter" #lcsm
Lung Cancer Sux @LungCancerSux
RT @BrendonStilesMD: T4. NCCN guidelines also available online. Make sure you aren’t too far off recommendations. #lcsm https://t.co/RbeD…
Bob Steele @steele_bob
RT @LungCancerHawai: @findlungcancer @JFreemanDaily HA! if that one's not taken I just might grab it. "I'm not a doctor but I play one on…
Andrea Borondy Kitts @findlungcancer
RT @LungCancerHawai: @findlungcancer @JFreemanDaily HA! if that one's not taken I just might grab it. "I'm not a doctor but I play one on…
Liam @thusspokeliam
RT @BrendonStilesMD: Here is a closing thought. From my Dad's grave stone. Live by this creed. #lcsm https://t.co/V0sqFoVK8E
Anita Figueras @scifiknitter
@LungCancerHawai @findlungcancer Woohoo! I visit Maryland a few times every year! #lcsm
#LCSM Chat @lcsmchat
RT @steele_bob: Gene mutation commonalities are chipping away at the silo cancer type perspective! #lcsm
#LCSM Chat @lcsmchat
RT @scifiknitter: @BrendonStilesMD I came away from T1 wondering if there ever is a situation without potential for disagreement 😮 #lcsm
#LCSM Chat @lcsmchat
RT @steele_bob: I always learn something every time I sit in on a Lung Cancer Social Media chat session! Good night all. Look 4ward to the…
Janet Freeman-Daily @JFreemanDaily
@thr4life @BRAVEmediaMO We already HAVE #lungcancer. Vaping and prevention won't help us. We created #LCSM to discuss treatment. Please don't discuss vaping here.
Ramiro Bermudez-I.MD @davidbermudezi
RT @sabinbmotwanimd: T4. ASCO answers guides are helpful https://t.co/I4JepLTLci #LCSM
Andrea Borondy Kitts @findlungcancer
RT @BrendonStilesMD: Here is a closing thought. From my Dad's grave stone. Live by this creed. #lcsm https://t.co/V0sqFoVK8E
Ramiro Bermudez-I.MD @davidbermudezi
RT @BrendonStilesMD: Patients don't always fall into perfect groups. Sometimes real choices exist. #lcsm https://t.co/2GIjo1bBXq
LungCancerMD @LungCancerMD
#lcsm
Vaping Pinot lover @castello2
RT @vaping4lifer: @DavidCookeMD #propaganda by the #antz #bigpharma #puppets #LCSM another #fakenews tweet
Andrea Borondy Kitts @findlungcancer
good thing is there are options; the tyranny of choice MT @scifiknitter: @BrendonStilesMD situation without disagreement 😮 #lcsm
april knowles @akknowles1
RT @JFreemanDaily: T3: Question for docs--how do you feel when patient returns from second opinion and says they don't want to do what you…
Janet Freeman-Daily @JFreemanDaily
Transcript for 6/29 #LCSM Chat on "When Doctors Disagree" is here: https://t.co/tO1Euae4ox
april knowles @akknowles1
RT @JFreemanDaily: Transcript for 6/29 #LCSM Chat on "When Doctors Disagree" is here: https://t.co/tO1Euae4ox
#LCSM content from Twitter.