#LCSM Transcript

Healthcare social media transcript of the #LCSM hashtag.
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H. Jack West, MD @JackWestMD
Welcome to #LCSM chat everyone! I'm Dr. Jack West, med onc in Seattle, moderating this evening. Can we start with intros, please?
Fred Gray @fcgiii
Fred Gray, caregiver #lcsm
Faces of Lung Cancer @LungCancerFaces
Deana Hendrickson in Los Angeles. Lost my mom to Lung Cancer. Trying to keep others from the same fate. #lcsm
Diane @diianeee
Hello! I'm Diane. Dx 04/14 stage IV adeno at 30. #lcsm
Faces of Lung Cancer @LungCancerFaces
@fcgiii Welcome Fred. #lcsm
Faces of Lung Cancer @LungCancerFaces
@diianeee Hey Diane! #lcsm
H. Jack West, MD @JackWestMD
We've got a really timely, challenging topic to discuss today: balancing personal connection w/sense of loss when others decline. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: Welcome to #LCSM chat everyone! I'm Dr. Jack West, med onc in Seattle, moderating this evening. Can we start with intros, p…
#LCSM Chat @lcsmchat
RT @JackWestMD: We've got a really timely, challenging topic to discuss today: balancing personal connection w/sense of loss when others de…
Faces of Lung Cancer @LungCancerFaces
I know that Janet is here somewhere... #lcsm
Geri Massa @GeriGerim13
Hi Y'all, looking forward to tonight 🙂 #LCSM
H. Jack West, MD @JackWestMD
This issue stems from a sense felt by many in the lung cancer community that several beloved friends have died recently, a deep loss. #lcsm
SunshineKK @SunshineKK68
hi #lcsm
Faces of Lung Cancer @LungCancerFaces
@GERI1365 Hi Geri! Did the fluids help? #lcsm
Faces of Lung Cancer @LungCancerFaces
@SunshineKK68 Welcome! #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: This issue stems from a sense felt by many in the lung cancer community that several beloved friends have died recently, a…
H. Jack West, MD @JackWestMD
Thanks to those joining us for a conversation that I think should be relevant & interesting to pts, caregivers, & docs alike. #lcsm
Geri Massa @GeriGerim13
Geri, Louisiana St1Aden, St2 Aden #lcsm
John from Alabama @JohnLPender
Good evening everybody! Nice to see me again. 😂 #lcsm
Janet Freeman-Daily @JFreemanDaily
Hi everyone! Janet in Seattle, enjoying sunshine and reasonable temps. https://t.co/raUoI2oaEq #lcsm
Liza Bernstein @itsthebunk
Hi to all on #LCSM. Liza Bernstein here - member of #bcsm; NED from 3 primary dxs of breast cancer. I know this topic too well. #lcsm
SunshineKK @SunshineKK68
Almost 100 in DC #lcsm
Faces of Lung Cancer @LungCancerFaces
@JohnLPender Hi john! #lcsm
Faces of Lung Cancer @LungCancerFaces
@SunshineKK68 Yuck #lcsm
Nay @ChancesR3
@lcsmchat Naomi here - caregiver and best friend for hubby who is stage 4 EGFR/T790M now LMC - currently on Tagrisso w/good results. #Lcsm
Faces of Lung Cancer @LungCancerFaces
@itsthebunk Hey, Liza! #lcsm
Janet Freeman-Daily @JFreemanDaily
@LungCancerFaces Sorry for my delay getting online--of course, an important call gets returned 3 min before chat starts... #lcsm
Antoun Nabhan @antounnabhan
Minoxidil started out as a blood pressure medication. Will PD-1s be the next big thing in cosmetics? https://t.co/GJyKNp28zD
Faces of Lung Cancer @LungCancerFaces
@ChancesR3 Hi Naomi! Another scorcher for us the weekend... #lcsm
H. Jack West, MD @JackWestMD
Not exclusive to lung cancer. Tx for joining! MT @itsthebunk: Hi to all. Liza Bernstein - member of #bcsm; I know this topic too well. #lcsm
Nay @ChancesR3
@LungCancerFaces Crazy Deana! DWP getting rich from us right??? #lcsm
Faces of Lung Cancer @LungCancerFaces
@ChancesR3 As usual #lcsm
Liza Bernstein @itsthebunk
@JackWestMD Hi! Will be back in a few. Have to take a call. #lcsm
Nay @ChancesR3
RT @JackWestMD: This issue stems from a sense felt by many in the lung cancer community that several beloved friends have died recently, a…
H. Jack West, MD @JackWestMD
Looks like a nice group. We'll start w/T1 in a moment. To review guidelines, pls include T1, etc to make it easier to follow convo. #lcsm
Laura Greco @lgreco_ny
Hi Laura here: survivor #lcsm
H. Jack West, MD @JackWestMD
Another general rule: if you edit someone's tweet when you RT, please change it to "MT" for modified tweet. #lcsm
Faces of Lung Cancer @LungCancerFaces
#LCSM Chat has just begun. Plenty of time to join us now.
Faces of Lung Cancer @LungCancerFaces
@lgreco_ny Hey, Laura! #lcsm
Frank Ingram, MD @Chucktowndoc
Good evening, friends. Ingram here. #Pathologist in Charlotte, NC. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: Looks like a nice group. We'll start w/T1 in a moment. To review guidelines, pls include T1, etc to make it easier to follo…
H. Jack West, MD @JackWestMD
Finally, we're friendly & want to have everyone chime in, but if you don't want to, pls just type "LCSM" so we can know you're here. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: Another general rule: if you edit someone's tweet when you RT, please change it to "MT" for modified tweet. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: #LCSM Chat has just begun. Plenty of time to join us now.
Faces of Lung Cancer @LungCancerFaces
@Chucktowndoc Welcome! Thanks for joining us. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: Finally, we're friendly & want to have everyone chime in, but if you don't want to, pls just type "LCSM" so we can know you…
Deb Smith @debsmithbeach
Hello, Deb here, in chilly damp NH. #LCSM
Timothy Craig Allen @TimAllenMDJD
Tim here. #lcsm https://t.co/AFGkKcigbY
H. Jack West, MD @JackWestMD
T1) Are there ways to honor loved connections, including in online communities, without becoming overwhelmed w/grief? #LCSM
Linnea Olson @1111linno
Howdy all. Sneaking in... #lcsm
Faces of Lung Cancer @LungCancerFaces
@debsmithbeach Hi Deb! #lcsm
Andy Dillon @lepointvierge
I won't be able to keep up in realtime but I'll catch up later. (In other news: learned today that brain MRI was clear again.) #LCSM
Faces of Lung Cancer @LungCancerFaces
@TimAllenMDJD Howdy, Tim! #lcsm
Faces of Lung Cancer @LungCancerFaces
@1111linno Hey GF! #lcsm
Faces of Lung Cancer @LungCancerFaces
@ndrwdlln Best news ever! #lcsm
Timothy Craig Allen @TimAllenMDJD
Howdy. #lcsm https://t.co/48YRbl2amC
#LCSM Chat @lcsmchat
RT @JackWestMD: T1) Are there ways to honor loved connections, including in online communities, without becoming overwhelmed w/grief? #LCSM
Tori Tomalia @lil_lytnin
Sneaking in late! #lcsm
Faces of Lung Cancer @LungCancerFaces
@lil_lytnin Hey Tori! #lcsm
H. Jack West, MD @JackWestMD
Glad to have you -- looking forward to your perspective. RT @lil_lytnin: Sneaking in late! #lcsm
Janet Freeman-Daily @JFreemanDaily
T1: Posting a picture of the deceased with a happy memory is a way to honor those who are gone without stirring up a ton of grief, ... #lcsm
Linnea Olson @1111linno
T1 I think being overwhelmed by grief is unavoidable given the magnitude of our losses in lung cancer. We honor by carrying on anyway. #lcsm
Faces of Lung Cancer @LungCancerFaces
T1: I don't have an answer. I am overwhelmed with grief right now. Kind of a weird numb tired grief. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T1: Posting a picture of the deceased with a happy memory is a way to honor those who are gone without stirring up a ton…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1: Posting a picture of the deceased with a happy memory is a way to honor those who are gone without stirring up a ton…
#LCSM Chat @lcsmchat
RT @1111linno: T1 I think being overwhelmed by grief is unavoidable given the magnitude of our losses in lung cancer. We honor by carrying…
Jillian's Dream @JilliansDream
RT @PatientPower: Have you read a "Conversation Growing Within Me (Part 3 of 3)" by @roszie of @JilliansDream #LCSM #lungcancer #blog
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T1: I don't have an answer. I am overwhelmed with grief right now. Kind of a weird numb tired grief. #lcsm
Frank Ingram, MD @Chucktowndoc
RT @JFreemanDaily: T1: Posting a picture of the deceased with a happy memory is a way to honor those who are gone without stirring up a ton…
Timothy Craig Allen @TimAllenMDJD
RT @1111linno: T1 I think being overwhelmed by grief is unavoidable given the magnitude of our losses in lung cancer. We honor by carrying…
Timothy Craig Allen @TimAllenMDJD
RT @LungCancerFaces: T1: I don't have an answer. I am overwhelmed with grief right now. Kind of a weird numb tired grief. #lcsm
Laura Greco @lgreco_ny
T1: I think it helps by asking what concrete steps can I take to help change these outcomes? #lcsm
Faces of Lung Cancer @LungCancerFaces
T1: And I hate that I am, on some level, getting kind of used to it. That's just wrong. #lcsm
Frank Ingram, MD @Chucktowndoc
RT @1111linno: T1 I think being overwhelmed by grief is unavoidable given the magnitude of our losses in lung cancer. We honor by carrying…
Janet Freeman-Daily @JFreemanDaily
... that said, the grief seems unavoidable, especially when the deceased is a friend, or when many pass close together. #lcsm
H. Jack West, MD @JackWestMD
T1: does the grief you feel make you wary about feeling a strong connection w/others who are at risk of declining? Do barriers go up? #lcsm
#LCSM Chat @lcsmchat
RT @lgreco_ny: T1: I think it helps by asking what concrete steps can I take to help change these outcomes? #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T1: And I hate that I am, on some level, getting kind of used to it. That's just wrong. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: ... that said, the grief seems unavoidable, especially when the deceased is a friend, or when many pass close together.…
#LCSM Chat @lcsmchat
RT @JackWestMD: T1: does the grief you feel make you wary about feeling a strong connection w/others who are at risk of declining? Do barri…
Janet Freeman-Daily @JFreemanDaily
@LungCancerFaces I do get kind of numb to it at times. If I open the door even a smidge, the grief can be overwhelming. #lcsm
Faces of Lung Cancer @LungCancerFaces
T1: Not really. We can't help people if we put up barriers. and that's no way to honor our dead. #lcsm
Laura Greco @lgreco_ny
T1: no, but I don't search out tragedy or drama either. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @LungCancerFaces I do get kind of numb to it at times. If I open the door even a smidge, the grief can be overwhelming.…
Frank Ingram, MD @Chucktowndoc
RT @JackWestMD: T1: does the grief you feel make you wary about feeling a strong connection w/others who are at risk of declining? Do barri…
Timothy Craig Allen @TimAllenMDJD
No. My take: You are still sensitive. But you continue to help others by carrying on despite unimaginable grief. #lcsm https://t.co/UdmuZ9F0qS
Betsy @wildwestannie
Hi everyone. #lcsm
Nay @ChancesR3
T1 I think we can honor those who have passed w/advocacy. The loss - it is hard especially when worried -ourselves or our loved ones. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T1: Not really. We can't help people if we put up barriers. and that's no way to honor our dead. #lcsm
#LCSM Chat @lcsmchat
RT @lgreco_ny: T1: no, but I don't search out tragedy or drama either. #lcsm
Timothy Craig Allen @TimAllenMDJD
2d that #lcsm https://t.co/FAqtsxMB8U
Janet Freeman-Daily @JFreemanDaily
@JackWestMD I must admit that I protect myself a bit more IRL--must leave myself a lot of alone time to process. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: No. My take: You are still sensitive. But you continue to help others by carrying on despite unimaginable grief.…
Faces of Lung Cancer @LungCancerFaces
@wildwestannie Hey Betsy. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JackWestMD: This issue stems from a sense felt by many in the lung cancer community that several beloved friends have died recently, a…
#LCSM Chat @lcsmchat
RT @ChancesR3: T1 I think we can honor those who have passed w/advocacy. The loss - it is hard especially when worried -ourselves or our lo…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @JackWestMD I must admit that I protect myself a bit more IRL--must leave myself a lot of alone time to process. #lcsm
Nay @ChancesR3
@JFreemanDaily @JackWestMD Agreed. Not always able to process easily with others. #lcsm
Geri Massa @GeriGerim13
T1 Being there for each other during grief is a part of it, I believe; especially someone going thru it for the first time #lcsm
H. Jack West, MD @JackWestMD
T1) I know these are tough issues to consider, and there certainly are no easy answers. Seems flipside of connection is grief. #lcsm
Faces of Lung Cancer @LungCancerFaces
T1: I compensate by eating my feelings. Lovely. #lcsm
H. Jack West, MD @JackWestMD
We'll move to the next question in another minute or so. #lcsm
#LCSM Chat @lcsmchat
RT @ChancesR3: @JFreemanDaily @JackWestMD Agreed. Not always able to process easily with others. #lcsm
#LCSM Chat @lcsmchat
RT @GERI1365: T1 Being there for each other during grief is a part of it, I believe; especially someone going thru it for the first time #…
#LCSM Chat @lcsmchat
RT @JackWestMD: T1) I know these are tough issues to consider, and there certainly are no easy answers. Seems flipside of connection is gri…
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T1: I compensate by eating my feelings. Lovely. #lcsm
Nay @ChancesR3
@LungCancerFaces That's why they call it comfort food. #lcsm :)
Janet Freeman-Daily @JFreemanDaily
T1: Does anyone else feel paralyzed at times by the magnitude of the grief? #lcsm
Faces of Lung Cancer @LungCancerFaces
@ChancesR3 I know, right? Gained fifty pounds when my mom got sick and died. Thank goodness I lost it, finally. #lcsm
#LCSM Chat @lcsmchat
RT @ChancesR3: @LungCancerFaces That's why they call it comfort food. #lcsm :)
Timothy Craig Allen @TimAllenMDJD
Grief is normal&healthy. But it's tough dealing with so much, seemingly all the time. Understanding that helps maintain perspective #lcsm https://t.co/yEgyLKj5WY
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1: Does anyone else feel paralyzed at times by the magnitude of the grief? #lcsm
H. Jack West, MD @JackWestMD
2) Can you have a strong online relationship w/others in cancer community w/o set-up for deep sense of loss if a person declines? #LCSM
Faces of Lung Cancer @LungCancerFaces
Absolutely. It's surreal RT @JFreemanDaily: T1: Does anyone else feel paralyzed at times by the magnitude of the grief? #lcsm
Betsy @wildwestannie
Totally. #lcsm https://t.co/c1EWxho9QP
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Grief is normal&healthy. But it's tough dealing with so much, seemingly all the time. Understanding that helps mai…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1: Does anyone else feel paralyzed at times by the magnitude of the grief? #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: Absolutely. It's surreal RT @JFreemanDaily: T1: Does anyone else feel paralyzed at times by the magnitude of the grief…
#LCSM Chat @lcsmchat
RT @JackWestMD: 2) Can you have a strong online relationship w/others in cancer community w/o set-up for deep sense of loss if a person dec…
Deb Smith @debsmithbeach
T1: In <6 mos, I'e lost an aunt & uncle, a cousin's 28yo daughter wMBC, a close friend w/Ov c, & a DFCI friend wLC, plus #LCSM losses. Tough
Liza Bernstein @itsthebunk
Hello again - I am now back 100% #lcsm
Janet Freeman-Daily @JFreemanDaily
RT @JackWestMD: 2) Can you have a strong online relationship w/others in cancer community w/o set-up for deep sense of loss if a person dec…
Liza Bernstein @itsthebunk
RT @JFreemanDaily: T1: Does anyone else feel paralyzed at times by the magnitude of the grief? #lcsm
Faces of Lung Cancer @LungCancerFaces
Nope 2) Can you have a strong online relationship w/others in cancer community w/o set-up for deep sense of loss if a person declines? #LCSM
Frank Ingram, MD @Chucktowndoc
T1: There is no right or wrong way to cope with loss, I think. There is lots of variation b/n different individuals/groups/cultures. #lcsm
Linnea Olson @1111linno
@JFreemanDaily Honestly, I feel galvanized more than paralyzed by grief. #lcsm
Faces of Lung Cancer @LungCancerFaces
@debsmithbeach Wow, thats so much. I'm so sorry. #lcsm
Liza Bernstein @itsthebunk
RT @1111linno: @JFreemanDaily Honestly, I feel galvanized more than paralyzed by grief. #lcsm
Chris Barnes PT, DPT @CBarnesPT
Hi everyone, sorry I'm late. Chris in Salt Lake City, happy to be with the #lcsm chat community
Timothy Craig Allen @TimAllenMDJD
This #lcsm https://t.co/BATrvXVCxV
Faces of Lung Cancer @LungCancerFaces
Great way to work thru this. #NotInVain RT @1111linno: @JFreemanDaily Honestly, I feel galvanized more than paralyzed by grief. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @1111linno: @JFreemanDaily Honestly, I feel galvanized more than paralyzed by grief. #lcsm
Faces of Lung Cancer @LungCancerFaces
@CBarnesPT Hi Chris #lcsm
Deb Smith @debsmithbeach
@LungCancerFaces Thanks, Deana. #LCSM
#LCSM Chat @lcsmchat
RT @wildwestannie: Totally. #lcsm https://t.co/c1EWxho9QP
Liza Bernstein @itsthebunk
@1111linno @JFreemanDaily Hi to you both! For me, it's a spectrum; depends what's going on in my life. But I ALWAYS end up galvanized #lcsm
#LCSM Chat @lcsmchat
RT @debsmithbeach: T1: In <6 mos, I'e lost an aunt & uncle, a cousin's 28yo daughter wMBC, a close friend w/Ov c, & a DFCI friend wLC, plus…
Janet Freeman-Daily @JFreemanDaily
T2: Nope. When I get close to someone, I am creating a bond that will leave a hole when it's torn away from the fabric of my life. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: Nope 2) Can you have a strong online relationship w/others in cancer community w/o set-up for deep sense of loss if a…
#LCSM Chat @lcsmchat
RT @Chucktowndoc: T1: There is no right or wrong way to cope with loss, I think. There is lots of variation b/n different individuals/gro…
H. Jack West, MD @JackWestMD
Thx for joining. Discuss'g coping w/loss. MT @CBarnesPT: Hi everyone, sorry I'm late.Chris in Salt Lake City, happy to be w/ #lcsm community
#LCSM Chat @lcsmchat
RT @1111linno: @JFreemanDaily Honestly, I feel galvanized more than paralyzed by grief. #lcsm
Liza Bernstein @itsthebunk
RT @LungCancerFaces: Great way to work thru this. #NotInVain RT @1111linno: @JFreemanDaily Honestly, I feel galvanized more than paralyzed…
Geri Massa @GeriGerim13
T2: if you get to know them whether online only or not , I believe one would feel a sense of loss if that friend is no longer there. #LCSM
#LCSM Chat @lcsmchat
RT @LungCancerFaces: Great way to work thru this. #NotInVain RT @1111linno: @JFreemanDaily Honestly, I feel galvanized more than paralyzed…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: Nope. When I get close to someone, I am creating a bond that will leave a hole when it's torn away from the fabric o…
Liza Bernstein @itsthebunk
@LungCancerFaces Hey Deana! (Did I spell your name correctly?) #lcsm
#LCSM Chat @lcsmchat
RT @GERI1365: T2: if you get to know them whether online only or not , I believe one would feel a sense of loss if that friend is no longer…
Linnea Olson @1111linno
T2 I don't think online relationships are any different than those in person in this regard. If we've develop a connection, we grieve. #lcsm
Tori Tomalia @lil_lytnin
T2: sometimes I put blinders on and try to ignore what the possible/probable outcome will be. #lcsm
Liza Bernstein @itsthebunk
RT @JackWestMD: 2) Can you have a strong online relationship w/others in cancer community w/o set-up for deep sense of loss if a person dec…
Faces of Lung Cancer @LungCancerFaces
@itsthebunk You did! #lcsm
#LCSM Chat @lcsmchat
RT @1111linno: T2 I don't think online relationships are any different than those in person in this regard. If we've develop a connection,…
Timothy Craig Allen @TimAllenMDJD
But I had much rather be here and grieve than not be a part of the #lcsm team. https://t.co/ic3F1LhT6m
#LCSM Chat @lcsmchat
RT @lil_lytnin: T2: sometimes I put blinders on and try to ignore what the possible/probable outcome will be. #lcsm
H. Jack West, MD @JackWestMD
T2: I agree it seems that you can't form a bond w/o knowing that it will hurt if/when that bond breaks. #lcsm
Liza Bernstein @itsthebunk
RT @JFreemanDaily: T2: Nope. When I get close to someone, I am creating a bond that will leave a hole when it's torn away from the fabric o…
Timothy Craig Allen @TimAllenMDJD
RT @1111linno: T2 I don't think online relationships are any different than those in person in this regard. If we've develop a connection,…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: But I had much rather be here and grieve than not be a part of the #lcsm team. https://t.co/ic3F1LhT6m
Klare O'Keefe @klareokeefe
RT @lcsmchat: TODAY! #LCSM Chat at 8pm ET, 5pm PT. Read about it here: https://t.co/gov5tESFNe Join us! @KlareOKeefe
#LCSM Chat @lcsmchat
RT @JackWestMD: T2: I agree it seems that you can't form a bond w/o knowing that it will hurt if/when that bond breaks. #lcsm
Liza Bernstein @itsthebunk
T2. Online or offline... once there's a bond, there's a bond. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T2: Nope. When I get close to someone, I am creating a bond that will leave a hole when it's torn away from the fabric o…
Janet Freeman-Daily @JFreemanDaily
@1111linno Usually it makes me more galvanized. Now and then, however, all the losses make me wonder if I'm making a difference. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JackWestMD: T2: I agree it seems that you can't form a bond w/o knowing that it will hurt if/when that bond breaks. #lcsm
Nay @ChancesR3
T2 I think docs hv dif challenges then others. those bonds - doc feel dif emotions w/loss of patient or I know contact?wonder abt toll #lcsm
Martin Skarzynski @marskar
RT @JAMADerm: 14 patients in anti-PD-1/anti-PD-L1 therapy for #lungcancer have shown hair repigmentation during Tx…
Liza Bernstein @itsthebunk
It's how life works MT @JackWestMD: T2: I agree it seems that you can't form a bond w/o knowing that it will hurt if/when bond breaks #lcsm
Faces of Lung Cancer @LungCancerFaces
T2: You get a sense of a person in online comm. Double the heartbreak when you meet IRL and confirm why you liked them in 1st place. #lcsm
Anurag @unurag
RT @JAMADerm: 14 patients in anti-PD-1/anti-PD-L1 therapy for #lungcancer have shown hair repigmentation during Tx…
#LCSM Chat @lcsmchat
RT @itsthebunk: T2. Online or offline... once there's a bond, there's a bond. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @1111linno Usually it makes me more galvanized. Now and then, however, all the losses make me wonder if I'm making a dif…
SunshineKK @SunshineKK68
Janet you ARE making a difference in the life of so many #lcsm
Linnea Olson @1111linno
@JFreemanDaily @1111linno I think even the simple act of caring makes a difference. And dear, you go far beyond simple caring. #lcsm
H. Jack West, MD @JackWestMD
Moving to next Q in a minute. #lcsm
Faces of Lung Cancer @LungCancerFaces
@JFreemanDaily Toots, you are making a huge difference. Remember the starfish... #lcsm
Timothy Craig Allen @TimAllenMDJD
We are human. Ultimately we cope. #lcsm https://t.co/Yq5JBqG4Aj
#LCSM Chat @lcsmchat
RT @ChancesR3: T2 I think docs hv dif challenges then others. those bonds - doc feel dif emotions w/loss of patient or I know contact?wonde…
#LCSM Chat @lcsmchat
RT @itsthebunk: It's how life works MT @JackWestMD: T2: I agree it seems that you can't form a bond w/o knowing that it will hurt if/when b…
Frank Ingram, MD @Chucktowndoc
But the alternative is not forming bonds with others. #EvenWorse #lcsm https://t.co/V0LqeYufKY
H. Jack West, MD @JackWestMD
T3) If many dealing w/death regularly learn to cope by developing emotional distance, should those in online communities want this? #LCSM
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T2: You get a sense of a person in online comm. Double the heartbreak when you meet IRL and confirm why you liked them…
Liza Bernstein @itsthebunk
@JFreemanDaily @1111linno Yes. But I always return2 "if I only help ONE person, then am making difference" & 1 becomes 2, & then many #lcsm
Liza Bernstein @itsthebunk
RT @Chucktowndoc: But the alternative is not forming bonds with others. #EvenWorse #lcsm https://t.co/V0LqeYufKY
#LCSM Chat @lcsmchat
RT @SunshineKK68: Janet you ARE making a difference in the life of so many #lcsm
#LCSM Chat @lcsmchat
RT @1111linno: @JFreemanDaily @1111linno I think even the simple act of caring makes a difference. And dear, you go far beyond simple carin…
#LCSM Chat @lcsmchat
RT @LungCancerFaces: @JFreemanDaily Toots, you are making a huge difference. Remember the starfish... #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: We are human. Ultimately we cope. #lcsm https://t.co/Yq5JBqG4Aj
Linnea Olson @1111linno
@itsthebunk @JFreemanDaily @1111linno Exactly. xo #lcsm
#LCSM Chat @lcsmchat
RT @Chucktowndoc: But the alternative is not forming bonds with others. #EvenWorse #lcsm https://t.co/V0LqeYufKY
#LCSM Chat @lcsmchat
RT @JackWestMD: T3) If many dealing w/death regularly learn to cope by developing emotional distance, should those in online communities wa…
Timothy Craig Allen @TimAllenMDJD
RT @Chucktowndoc: But the alternative is not forming bonds with others. #EvenWorse #lcsm https://t.co/V0LqeYufKY
Deb Smith @debsmithbeach
@JFreemanDaily Yes, I do. Makes me think about my son & others I'll leave behind. I try to focus on the present, find joy, do fundraising & advocacy, #LCSM
#LCSM Chat @lcsmchat
RT @itsthebunk: @JFreemanDaily @1111linno Yes. But I always return2 "if I only help ONE person, then am making difference" & 1 becomes 2, &…
Liza Bernstein @itsthebunk
RT @JFreemanDaily: @1111linno Usually it makes me more galvanized. Now and then, however, all the losses make me wonder if I'm making a dif…
Timothy Craig Allen @TimAllenMDJD
RT @JackWestMD: T3) If many dealing w/death regularly learn to cope by developing emotional distance, should those in online communities wa…
Timothy Craig Allen @TimAllenMDJD
RT @itsthebunk: @JFreemanDaily @1111linno Yes. But I always return2 "if I only help ONE person, then am making difference" & 1 becomes 2, &…
Liza Bernstein @itsthebunk
RT @1111linno: @JFreemanDaily @1111linno I think even the simple act of caring makes a difference. And dear, you go far beyond simple carin…
Nay @ChancesR3
@LungCancerFaces @JFreemanDaily You as well D! #lcsm
Liza Bernstein @itsthebunk
RT @LungCancerFaces: T2: You get a sense of a person in online comm. Double the heartbreak when you meet IRL and confirm why you liked them…
Janet Freeman-Daily @JFreemanDaily
T2: I think for us patients, it's hard to overlook the implications of another #lungcancer death: "I might be next" #LCSM https://t.co/mmtlKVi8QA
VeryLegal&VeryCool, LLC @Tricia_Braun
RT @SunshineKK68: Janet you ARE making a difference in the life of so many #lcsm
H. Jack West, MD @JackWestMD
T3) Specifically, is there some level of detachment you need to soldier on & help others, whether as doc or advocate or friend? #lcsm
Laura Greco @lgreco_ny
T3: Even if you have emotional distance, online relationships help #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @debsmithbeach: @JFreemanDaily Yes, I do. Makes me think about my son & others I'll leave behind. I try to focus on the present, fi…
Faces of Lung Cancer @LungCancerFaces
T3: It's OK to compartmentalize to keep sanity. That's what doctors do. #lcsm
#LCSM Chat @lcsmchat
RT @debsmithbeach: @JFreemanDaily Yes, I do. Makes me think about my son & others I'll leave behind. I try to focus on the present, fi…
Liza Bernstein @itsthebunk
@LungCancerFaces Sometimes, even if you don't meet IRL, the bond & impact of that person on yr life can be so deep. #lcsm
Nay @ChancesR3
RT @JackWestMD: T3) If many dealing w/death regularly learn to cope by developing emotional distance, should those in online communities wa…
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T2: I think for us patients, it's hard to overlook the implications of another #lungcancer death: "I might be next"…
Liza Bernstein @itsthebunk
RT @JackWestMD: T3) Specifically, is there some level of detachment you need to soldier on & help others, whether as doc or advocate or fr…
Chris Barnes PT, DPT @CBarnesPT
RT @JFreemanDaily: T2: I think for us patients, it's hard to overlook the implications of another #lungcancer death: "I might be next"…
Eden Lake @EdenLake
Better late than never.. hi all. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: I think for us patients, it's hard to overlook the implications of another #lungcancer death: "I might be next"…
Mark Dimor @MarksPhone
@JackWestMD #lcsm The bigger issue here for me was not seeking closure on grief but looking at it Closure is indifference it is denial said pretty
#LCSM Chat @lcsmchat
RT @JackWestMD: T3) Specifically, is there some level of detachment you need to soldier on & help others, whether as doc or advocate or fr…
#LCSM Chat @lcsmchat
RT @lgreco_ny: T3: Even if you have emotional distance, online relationships help #lcsm
Linnea Olson @1111linno
@JackWestMD How do oncologists cope? And particularly in fields like thoracic oncology, where you will lose most of your patients? #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T3: It's OK to compartmentalize to keep sanity. That's what doctors do. #lcsm
#LCSM Chat @lcsmchat
RT @itsthebunk: @LungCancerFaces Sometimes, even if you don't meet IRL, the bond & impact of that person on yr life can be so deep. #lcsm
Liza Bernstein @itsthebunk
Yes. And/or find #selfcare that works for U MT @LungCancerFaces: T3: It's OK to compartmentalize to keep sanity. That's what docs do #lcsm
Beth Caldwell @cultperfectmoms
RT @1111linno: @JackWestMD How do oncologists cope? And particularly in fields like thoracic oncology, where you will lose most of your pat…
Liza Bernstein @itsthebunk
RT @1111linno: @JackWestMD How do oncologists cope? And particularly in fields like thoracic oncology, where you will lose most of your pat…
Liza Bernstein @itsthebunk
RT @LungCancerFaces: T3: It's OK to compartmentalize to keep sanity. That's what doctors do. #lcsm
Nay @ChancesR3
T3 I comparmentalize every day - necessary too stay positive. it helps! #lcsm
Faces of Lung Cancer @LungCancerFaces
@EdenLake Hi Eden #lcsm
#LCSM Chat @lcsmchat
RT @MarksPhone: @JackWestMD #lcsm The bigger issue here for me was not seeking closure on grief but looking at it Closure is indiff…
Naoto Ueno, MD, PhD @teamoncology
RT @InflammatoryBCa: An interesting “positive” side effect from some immunotherapy drugs, assoc/ w response. Seems to be mainly in elder…
#LCSM Chat @lcsmchat
RT @1111linno: @JackWestMD How do oncologists cope? And particularly in fields like thoracic oncology, where you will lose most of your pat…
Beth Caldwell @cultperfectmoms
RT @1111linno: T2 I don't think online relationships are any different than those in person in this regard. If we've develop a connection,…
Linnea Olson @1111linno
T3 Lung cancer is not for the meek; nor is being part of the lung cancer community. Emotional distance is not an option. #lcsm
#LCSM Chat @lcsmchat
RT @itsthebunk: Yes. And/or find #selfcare that works for U MT @LungCancerFaces: T3: It's OK to compartmentalize to keep sanity. That's wha…
#LCSM Chat @lcsmchat
RT @ChancesR3: T3 I comparmentalize every day - necessary too stay positive. it helps! #lcsm
Liza Bernstein @itsthebunk
RT @1111linno: T3 Lung cancer is not for the meek; nor is being part of the lung cancer community. Emotional distance is not an option. #lc
#LCSM Chat @lcsmchat
RT @1111linno: T3 Lung cancer is not for the meek; nor is being part of the lung cancer community. Emotional distance is not an option. #lc
Frank Ingram, MD @Chucktowndoc
You can bottle it up short-term to get through the day, but ultimately you have to feel. #lcsm https://t.co/DDNFewQD0d
Jan Marie Eberth @jmeberth
#lcsm Joining from Columbia, SC this hot evening...
Mark Dimor @MarksPhone
#lcsm sorry forgot # https://t.co/CpQL6YnTuV
Beth Caldwell @cultperfectmoms
RT @1111linno: T1 I think being overwhelmed by grief is unavoidable given the magnitude of our losses in lung cancer. We honor by carrying…
Liza Bernstein @itsthebunk
@1111linno Same goes for breastcancer #bcsm, and, I imagine, for other cancers too. #WeAreAllInThisTogether #lcsm
H. Jack West, MD @JackWestMD
@1111linno But can you function if every person's death is like that of a longtime friend or close family member? #lcsm
Faces of Lung Cancer @LungCancerFaces
T3: Sometimes, I can put it away for the evening. I call it "pulling a Scarlet" as in "I'll think about it tomorrow" #lcsm
Linnea Olson @1111linno
@itsthebunk @1111linno Yes <3 #lcsm
Flemming Rasmussen @fgrazz
#LCSM...dropping in for the remainder #lcsm
#LCSM Chat @lcsmchat
RT @Chucktowndoc: You can bottle it up short-term to get through the day, but ultimately you have to feel. #lcsm https://t.co/DDNFewQD0d
Betsy @wildwestannie
Agree. I've tried. Not possible! #lcsm https://t.co/hYN7nLcRWq
Michele Rhee @michelerhee
RT @1111linno: T1 I think being overwhelmed by grief is unavoidable given the magnitude of our losses in lung cancer. We honor by carrying…
Eden Lake @EdenLake
T3 I have momentary shut down days.. off grid a day or two lets me recharge without arms-lengthing people/connection #lcsm
Michele Rhee @michelerhee
RT @1111linno: T2 I don't think online relationships are any different than those in person in this regard. If we've develop a connection,…
Tori Tomalia @lil_lytnin
RT @1111linno: T3 Lung cancer is not for the meek; nor is being part of the lung cancer community. Emotional distance is not an option. #lc
Faces of Lung Cancer @LungCancerFaces
@jmeberth Hey lady! #lcsm
Liza Bernstein @itsthebunk
@JackWestMD @1111linno Sometimes grief will paralyze you, maybe even for months.... we have to go through what we go through #lcsm
Faces of Lung Cancer @LungCancerFaces
@MarksPhone Hi Mark #lcsm
Liza Bernstein @itsthebunk
RT @EdenLake: T3 I have momentary shut down days.. off grid a day or two lets me recharge without arms-lengthing people/connection #lcsm
Faces of Lung Cancer @LungCancerFaces
@fgrazz Thanks for dropping by #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @1111linno: T3 Lung cancer is not for the meek; nor is being part of the lung cancer community. Emotional distance is not an option. #lc
Liza Bernstein @itsthebunk
RT @JackWestMD: @1111linno But can you function if every person's death is like that of a longtime friend or close family member? #lcsm
#LCSM Chat @lcsmchat
RT @MarksPhone: #lcsm sorry forgot # https://t.co/CpQL6YnTuV
Linnea Olson @1111linno
@JackWestMD @1111linno No, but just like in 'real' life, you get closer to some people than others. And really close to very few. #lcsm
Jan Marie Eberth @jmeberth
Many a lung cancer support groups disband due to the emotional difficulty of deaths of its members. #lcsm
#LCSM Chat @lcsmchat
RT @itsthebunk: @1111linno Same goes for breastcancer #bcsm, and, I imagine, for other cancers too. #WeAreAllInThisTogether #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @itsthebunk: Yes. And/or find #selfcare that works for U MT @LungCancerFaces: T3: It's OK to compartmentalize to keep sanity. That's wha…
#LCSM Chat @lcsmchat
RT @JackWestMD: @1111linno But can you function if every person's death is like that of a longtime friend or close family member? #lcsm
Mark Dimor @MarksPhone
@LungCancerFaces Hey #lcsm
Beth Caldwell @cultperfectmoms
RT @JFreemanDaily: T2: I think for us patients, it's hard to overlook the implications of another #lungcancer death: "I might be next"…
Janet Freeman-Daily @JFreemanDaily
T3: Emotional distance would be easier. Then I remember the huge difference a friendly post made for me as a newly-diagnosed patient. #lcsm
Liza Bernstein @itsthebunk
@JackWestMD @1111linno I think also, we learn to cope. We have to learn to cope. #lcsm
H. Jack West, MD @JackWestMD
Sad, but believable. RT @jmeberth: Many a lung cancer support groups disband due to the emotional difficulty of deaths of its members. #lcsm
Liza Bernstein @itsthebunk
RT @1111linno: @JackWestMD @1111linno No, but just like in 'real' life, you get closer to some people than others. And really close to very…
Faces of Lung Cancer @LungCancerFaces
@JackWestMD Depends on individual. My mom lived thru horrors in Holocaust. Worse than you can imagine. She went on. @1111linno #lcsm
Laura Greco @lgreco_ny
RT @JackWestMD: Sad, but believable. RT @jmeberth: Many a lung cancer support groups disband due to the emotional difficulty of deaths of i…
Geri Massa @GeriGerim13
T3: Those online who may be going thru same thing as you can understand so much more than family member or friend that has not a clue #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T3: Sometimes, I can put it away for the evening. I call it "pulling a Scarlet" as in "I'll think about it tomorrow" #…
Liza Bernstein @itsthebunk
RT @LungCancerFaces: @JackWestMD Depends on individual. My mom lived thru horrors in Holocaust. Worse than you can imagine. She went on. @1
#LCSM Chat @lcsmchat
RT @wildwestannie: Agree. I've tried. Not possible! #lcsm https://t.co/hYN7nLcRWq
SunshineKK @SunshineKK68
Grief is always there with death. We all cope in different ways. Its important to remember how important the friendships are in life! #lcsm
#LCSM Chat @lcsmchat
RT @EdenLake: T3 I have momentary shut down days.. off grid a day or two lets me recharge without arms-lengthing people/connection #lcsm
#LCSM Chat @lcsmchat
RT @itsthebunk: @JackWestMD @1111linno Sometimes grief will paralyze you, maybe even for months.... we have to go through what we go throug…
Nay @ChancesR3
@JFreemanDaily Exactly Janet. So true I remember Deana when I reached out from my husband's diagnosis. So we need each other. #lcsm
Liza Bernstein @itsthebunk
RT @GERI1365: T3: Those online who may be going thru same thing as you can understand so much more than family member or friend that has n…
#LCSM Chat @lcsmchat
RT @1111linno: @JackWestMD @1111linno No, but just like in 'real' life, you get closer to some people than others. And really close to very…
#LCSM Chat @lcsmchat
RT @jmeberth: Many a lung cancer support groups disband due to the emotional difficulty of deaths of its members. #lcsm
Linnea Olson @1111linno
@itsthebunk @JackWestMD @1111linno Yes. So much of survival boils down to the simple act of coping. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3: Emotional distance would be easier. Then I remember the huge difference a friendly post made for me as a newly-diagn…
Bora Lim, MD @naborala
RT @InflammatoryBCa: An interesting “positive” side effect from some immunotherapy drugs, assoc/ w response. Seems to be mainly in elder…
#LCSM Chat @lcsmchat
RT @itsthebunk: @JackWestMD @1111linno I think also, we learn to cope. We have to learn to cope. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: @JackWestMD Depends on individual. My mom lived thru horrors in Holocaust. Worse than you can imagine. She went on. @1
#LCSM Chat @lcsmchat
RT @GERI1365: T3: Those online who may be going thru same thing as you can understand so much more than family member or friend that has n…
#LCSM Chat @lcsmchat
RT @SunshineKK68: Grief is always there with death. We all cope in different ways. Its important to remember how important the friendships…
#LCSM Chat @lcsmchat
RT @ChancesR3: @JFreemanDaily Exactly Janet. So true I remember Deana when I reached out from my husband's diagnosis. So we need each other…
Beth Caldwell @cultperfectmoms
RT @LungCancerFaces: @JackWestMD Depends on individual. My mom lived thru horrors in Holocaust. Worse than you can imagine. She went on. @1
Liza Bernstein @itsthebunk
These wise and beautiful words from Nelson Mandela are my pinned tweet - re despair and keeping on keeping on: https://t.co/UeejS70a2I #lcsm
Janet Freeman-Daily @JFreemanDaily
T3: I compartmentalize somewhat by limiting the number of patient posts I reply to personally. I have to reserve some energy for me. #lcsm
H. Jack West, MD @JackWestMD
@LungCancerFaces At risk of too much of a tired "cancer as war" analogy, it does leave many hardened. You just need to survive. #lcsm
Liza Bernstein @itsthebunk
YES, Linnea! RT @1111linno: @itsthebunk @JackWestMD @1111linno Yes. So much of survival boils down to the simple act of coping. #lcsm
Jan Marie Eberth @jmeberth
We have a @BristolMeyers grant to create an inventory of support services for lung cancer survivors. Message me if you have info! #lcsm
Liza Bernstein @itsthebunk
RT @JFreemanDaily: T3: I compartmentalize somewhat by limiting the number of patient posts I reply to personally. I have to reserve some en…
Faces of Lung Cancer @LungCancerFaces
@ChancesR3 Naomi, how I wish we had met under different circumstances, but I'm glad we know each other. @JFreemanDaily #lcsm
#LCSM Chat @lcsmchat
RT @1111linno: @itsthebunk @JackWestMD @1111linno Yes. So much of survival boils down to the simple act of coping. #lcsm
#LCSM Chat @lcsmchat
RT @itsthebunk: These wise and beautiful words from Nelson Mandela are my pinned tweet - re despair and keeping on keeping on: https://t.co…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3: I compartmentalize somewhat by limiting the number of patient posts I reply to personally. I have to reserve some en…
#LCSM Chat @lcsmchat
RT @JackWestMD: @LungCancerFaces At risk of too much of a tired "cancer as war" analogy, it does leave many hardened. You just need to surv…
Linnea Olson @1111linno
@JFreemanDaily Which reminds me....I am supposed to call someone. #lcsm
#LCSM Chat @lcsmchat
RT @jmeberth: We have a @BristolMeyers grant to create an inventory of support services for lung cancer survivors. Message me if you have i…
#LCSM Chat @lcsmchat
RT @LungCancerFaces: @ChancesR3 Naomi, how I wish we had met under different circumstances, but I'm glad we know each other. @JFreemanDaily
H. Jack West, MD @JackWestMD
Next we'll be turning to what this should mean for the relationship between patient & their oncologist. Coming right up in a moment. #lcsm
Betsy @wildwestannie
@JackWestMD @1111linno Depends- some haunt more than others. #lcsm
Junaid Ansari @themedfiles
RT @JAMADerm: 14 patients in anti-PD-1/anti-PD-L1 therapy for #lungcancer have shown hair repigmentation during Tx…
Faces of Lung Cancer @LungCancerFaces
T3: Arash Golbon told me that he didn't want Molly's death to be in vain. I think that's what motivates many. It does for me. #lcsm
H. Jack West, MD @JackWestMD
T4) How much empathy should a #cancer pt & their physician share? Should there be professional distance in therapeutic relationship? #LCSM
Linnea Olson @1111linno
@wildwestannie @JackWestMD @1111linno Yes. Unavoidable. Sometimes it is a punch in the heart; other times I am gutted. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: Next we'll be turning to what this should mean for the relationship between patient & their oncologist. Coming right up in…
Deb Smith @debsmithbeach
@jmeberth @lcsmchat I can see why this would happen. I hope a good facilitator would help. #LCSM
#LCSM Chat @lcsmchat
RT @wildwestannie: @JackWestMD @1111linno Depends- some haunt more than others. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T3: Arash Golbon told me that he didn't want Molly's death to be in vain. I think that's what motivates many. It does…
#LCSM Chat @lcsmchat
RT @JackWestMD: T4) How much empathy should a #cancer pt & their physician share? Should there be professional distance in therapeutic rela…
Liza Bernstein @itsthebunk
@wildwestannie @JackWestMD @1111linno 1st online #bcsm advocate I lost haunts & galvanizes me. When I falter her memory re-inspires me #lcsm
Faces of Lung Cancer @LungCancerFaces
T4: I think there must be some distance, but some patients and docs just click and really like each other. It's tough. #lcsm
Nay @ChancesR3
@LungCancerFaces @JFreemanDaily Agreed Deana. ❤️#lcsm
Liza Bernstein @itsthebunk
RT @wildwestannie: @JackWestMD @1111linno Depends- some haunt more than others. #lcsm
H. Jack West, MD @JackWestMD
T4) You certainly want a good relationship betw pt & oncologist, but do you/would you want them to cross into "friend" territory? #lcsm
Tori Tomalia @lil_lytnin
RT @LungCancerFaces: T3: Arash Golbon told me that he didn't want Molly's death to be in vain. I think that's what motivates many. It does…
Liza Bernstein @itsthebunk
RT @JackWestMD: T4) You certainly want a good relationship betw pt & oncologist, but do you/would you want them to cross into "friend" terr…
Janet Freeman-Daily @JFreemanDaily
@1111linno You're asking ME to remember who is supposed to call whom? We're in deep trouble ... #lcsm
SOTS @sparkyontheseas
@JackWestMD It's hard when you see each other frequently. #LCSM
Faces of Lung Cancer @LungCancerFaces
T4: When mom was dying, her pulm came into the room. His eyes were red, there were tears in them. His mom died of LC, too. Oh, man. #lcsm
Laura Greco @lgreco_ny
t4: I want them personally invested in my outcome. Whether that means friend? #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @LungCancerFaces: T4: I think there must be some distance, but some patients and docs just click and really like each other. It's tough.…
Faces of Lung Cancer @LungCancerFaces
@JFreemanDaily @1111linno Do you need me to be your social secretary? #lcsm
H. Jack West, MD @JackWestMD
T4) Do you feel you lose best judgment? Concern that managing w/heart might compete w/managing with onc's head? #lcsm
Liza Bernstein @itsthebunk
@JackWestMD Can be tricky. Mine feels like she's stuck seeing me as v lost 29 yr old I once was (at 1st dx). I've grown up lots since #lcsm
Flemming Rasmussen @fgrazz
T4 - It will almost always depend on the 'mutual' feeling on how close the relationship...but there remain 'limits' on both sides #lcsm
Bob Steele @steele_bob
A very late arrival - sorry. #lcsm
#LCSM Chat @lcsmchat
RT @1111linno: @wildwestannie @JackWestMD @1111linno Yes. Unavoidable. Sometimes it is a punch in the heart; other times I am gutted. #lcsm
#LCSM Chat @lcsmchat
RT @debsmithbeach: @jmeberth @lcsmchat I can see why this would happen. I hope a good facilitator would help. #LCSM
Linnea Olson @1111linno
T4 My oncologist and I don't pal around together but damn, I love her & consider our relationship one of my most significant. So...no. #lcsm
Janet Freeman-Daily @JFreemanDaily
@LungCancerFaces Reminds me -- we need to capture your awesome rant about motivation in a blog post on #LCSMchat.com #lcsm
Liza Bernstein @itsthebunk
RT @fgrazz: T4 - It will almost always depend on the 'mutual' feeling on how close the relationship...but there remain 'limits' on both sid…
H. Jack West, MD @JackWestMD
RT @1111linno: @wildwestannie @JackWestMD @1111linno Yes. Unavoidable. Sometimes it is a punch in the heart; other times I am gutted. #lcsm
John from Alabama @JohnLPender
t4 I feel like I am on a friends basis with my onc. It helps tremendously. #lcsm
H. Jack West, MD @JackWestMD
RT @fgrazz: T4 - It will almost always depend on the 'mutual' feeling on how close the relationship...but there remain 'limits' on both sid…
Faces of Lung Cancer @LungCancerFaces
@itsthebunk Jody? @wildwestannie @JackWestMD @1111linno #lcsm
#LCSM Chat @lcsmchat
RT @itsthebunk: @wildwestannie @JackWestMD @1111linno 1st online #bcsm advocate I lost haunts & galvanizes me. When I falter her memory re-…
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T4: I think there must be some distance, but some patients and docs just click and really like each other. It's tough.…
#LCSM Chat @lcsmchat
RT @JackWestMD: T4) You certainly want a good relationship betw pt & oncologist, but do you/would you want them to cross into "friend" terr…
#LCSM Chat @lcsmchat
RT @sparkyontheseas: @JackWestMD It's hard when you see each other frequently. #LCSM
Timothy Craig Allen @TimAllenMDJD
Has to be. Professionalism requires that. Doesn't mean MD doesn't care. #lcsm https://t.co/ygkfMRfpq0
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T4: When mom was dying, her pulm came into the room. His eyes were red, there were tears in them. His mom died of LC,…
#LCSM Chat @lcsmchat
RT @lgreco_ny: t4: I want them personally invested in my outcome. Whether that means friend? #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: T4) Do you feel you lose best judgment? Concern that managing w/heart might compete w/managing with onc's head? #lcsm
Liza Bernstein @itsthebunk
@LungCancerFaces @itsthebunk @wildwestannie @JackWestMD @1111linno No, she was not the first, alas. It was Rachel @ccchronicles #lcsm
#LCSM Chat @lcsmchat
RT @itsthebunk: @JackWestMD Can be tricky. Mine feels like she's stuck seeing me as v lost 29 yr old I once was (at 1st dx). I've grown up…
Linnea Olson @1111linno
@LungCancerFaces @JFreemanDaily @1111linno YES!!!!!!!!! #lcsm
#LCSM Chat @lcsmchat
RT @fgrazz: T4 - It will almost always depend on the 'mutual' feeling on how close the relationship...but there remain 'limits' on both sid…
Timothy Craig Allen @TimAllenMDJD
Inappropriate. #lcsm https://t.co/Cq3txDcAYQ
Faces of Lung Cancer @LungCancerFaces
@steele_bob Hi Bob! #lcsm
Mark Dimor @MarksPhone
#lcsm I think empathy from HCP is driven less by the interpersonal aspect & more by care for patient/family, SDM, & understanding goals
Frank Ingram, MD @Chucktowndoc
RT @TimAllenMDJD: Has to be. Professionalism requires that. Doesn't mean MD doesn't care. #lcsm https://t.co/ygkfMRfpq0
H. Jack West, MD @JackWestMD
T4) I'll say 1 thing that impressed me about becoming med onc was seeing potential for such mutual investment betw onc & pt over time. #lcsm
Liza Bernstein @itsthebunk
@LungCancerFaces @itsthebunk @wildwestannie @JackWestMD @1111linno Not that the loss of Jody hasn't been massive :( #lcsm
Liza Bernstein @itsthebunk
RT @JackWestMD: T4) I'll say 1 thing that impressed me about becoming med onc was seeing potential for such mutual investment betw onc & pt…
Deb Smith @debsmithbeach
RT @1111linno: @itsthebunk @JackWestMD @1111linno Yes. So much of survival boils down to the simple act of coping. #lcsm
#LCSM Chat @lcsmchat
RT @1111linno: T4 My oncologist and I don't pal around together but damn, I love her & consider our relationship one of my most significant…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @LungCancerFaces Reminds me -- we need to capture your awesome rant about motivation in a blog post on #LCSMchat.com #lc
Frank Ingram, MD @Chucktowndoc
RT @JackWestMD: T4) I'll say 1 thing that impressed me about becoming med onc was seeing potential for such mutual investment betw onc & pt…
Timothy Craig Allen @TimAllenMDJD
#calling #lcsm https://t.co/vNJeVVW9N8
Faces of Lung Cancer @LungCancerFaces
@JFreemanDaily Ha! Thanks. Wish my hubby liked my rants this much. #lcsm
Janet Freeman-Daily @JFreemanDaily
T4: After 6+ yrs, relationships with my cancer docs have become friendships. They inspire my advocacy, but I respect their space. #lcsm
#LCSM Chat @lcsmchat
RT @JohnLPender: t4 I feel like I am on a friends basis with my onc. It helps tremendously. #lcsm
Liza Bernstein @itsthebunk
@JackWestMD Yes! Sadly, the dynamic doesn't always evolve in the optimal direction. Sometimes wonder what it'd be like to start fresh #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Has to be. Professionalism requires that. Doesn't mean MD doesn't care. #lcsm https://t.co/ygkfMRfpq0
Liza Bernstein @itsthebunk
RT @JFreemanDaily: T4: After 6+ yrs, relationships with my cancer docs have become friendships. They inspire my advocacy, but I respect the…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Inappropriate. #lcsm https://t.co/Cq3txDcAYQ
#LCSM Chat @lcsmchat
RT @MarksPhone: #lcsm I think empathy from HCP is driven less by the interpersonal aspect & more by care for patient/family, SDM, & underst…
Bob Steele @steele_bob
RT @JFreemanDaily: T4: After 6+ yrs, relationships with my cancer docs have become friendships. They inspire my advocacy, but I respect the…
#LCSM Chat @lcsmchat
RT @JackWestMD: T4) I'll say 1 thing that impressed me about becoming med onc was seeing potential for such mutual investment betw onc & pt…
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T4: After 6+ yrs, relationships with my cancer docs have become friendships. They inspire my advocacy, but I respect the…
Flemming Rasmussen @fgrazz
@JackWestMD T4 - ...physician/pt seems a very close analogy with a clergy/parishner ...always topics o/s cancer (or 'God') to connect #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T4: After 6+ yrs, relationships with my cancer docs have become friendships. They inspire my advocacy, but I respect the…
#LCSM Chat @lcsmchat
RT @itsthebunk: @JackWestMD Yes! Sadly, the dynamic doesn't always evolve in the optimal direction. Sometimes wonder what it'd be like to s…
Nay @ChancesR3
RT @JFreemanDaily: T4: After 6+ yrs, relationships with my cancer docs have become friendships. They inspire my advocacy, but I respect the…
H. Jack West, MD @JackWestMD
RT @fgrazz: @JackWestMD T4 - ...physician/pt seems a very close analogy with a clergy/parishner ...always topics o/s cancer (or 'God') to c…
Susan Burke Mangano @susila55
RT @LungCancerFaces: T4: I think there must be some distance, but some patients and docs just click and really like each other. It's tough.…
Linnea Olson @1111linno
T4 Feeling close to my oncologist helps a lot with trust. She is invested in my outcome and considers us partners in care. That's <3 #lcsm
Timothy Craig Allen @TimAllenMDJD
Both are based on trust. #lcsm https://t.co/p3tQIGk8ZB
Liza Bernstein @itsthebunk
RT @1111linno: T4 Feeling close to my oncologist helps a lot with trust. She is invested in my outcome and considers us partners in care. T…
H. Jack West, MD @JackWestMD
RT @1111linno: T4 Feeling close to my oncologist helps a lot with trust. She is invested in my outcome and considers us partners in care. T…
Janet Freeman-Daily @JFreemanDaily
@LungCancerFaces @1111linno Nah -- then we'd have to remember to tell you what we've forgotten. ;) #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @1111linno: T4 Feeling close to my oncologist helps a lot with trust. She is invested in my outcome and considers us partners in care. T…
#LCSM Chat @lcsmchat
RT @fgrazz: @JackWestMD T4 - ...physician/pt seems a very close analogy with a clergy/parishner ...always topics o/s cancer (or 'God') to c…
#LCSM Chat @lcsmchat
RT @1111linno: T4 Feeling close to my oncologist helps a lot with trust. She is invested in my outcome and considers us partners in care. T…
Bob Steele @steele_bob
RT @1111linno: T4 Feeling close to my oncologist helps a lot with trust. She is invested in my outcome and considers us partners in care. T…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Both are based on trust. #lcsm https://t.co/p3tQIGk8ZB
Flemming Rasmussen @fgrazz
@JackWestMD T4 - Let the head lead always...and temper it with the heart ...each gets pulled 'two feet in' if other way around #lcsm
Betsy @wildwestannie
@JackWestMD Actually yes. Despite knowledge about the benefits of professional objectivity. #lcsm
#LCSM Chat @lcsmchat
RT @fgrazz: @JackWestMD T4 - Let the head lead always...and temper it with the heart ...each gets pulled 'two feet in' if other way around…
H. Jack West, MD @JackWestMD
We'll turn to our last question in a minute... #lcsm
#LCSM Chat @lcsmchat
RT @wildwestannie: @JackWestMD Actually yes. Despite knowledge about the benefits of professional objectivity. #lcsm
Bob Steele @steele_bob
RT @LungCancerFaces: T4: When mom was dying, her pulm came into the room. His eyes were red, there were tears in them. His mom died of LC,…
Frank Ingram, MD @Chucktowndoc
RT @1111linno: T4 Feeling close to my oncologist helps a lot with trust. She is invested in my outcome and considers us partners in care. T…
H. Jack West, MD @JackWestMD
T5) What approaches/techniques do you use to manage the emotions generated by deaths of #lungcancer patients you know? #LCSM
Linnea Olson @1111linno
@JFreemanDaily @LungCancerFaces @1111linno But we'd have a good excuse for hanging out! #lcsm
Liza Bernstein @itsthebunk
RT @JackWestMD: T5) What approaches/techniques do you use to manage the emotions generated by deaths of #lungcancer patients you know? #LCSM
Bob Steele @steele_bob
RT @JackWestMD: @LungCancerFaces At risk of too much of a tired "cancer as war" analogy, it does leave many hardened. You just need to surv…
Bob Steele @steele_bob
RT @JFreemanDaily: T3: I compartmentalize somewhat by limiting the number of patient posts I reply to personally. I have to reserve some en…
#LCSM Chat @lcsmchat
RT @JackWestMD: T5) What approaches/techniques do you use to manage the emotions generated by deaths of #lungcancer patients you know? #LCSM
Janet Freeman-Daily @JFreemanDaily
@1111linno @LungCancerFaces I'll take any excuse for hanging out! #lcsm
Bob Steele @steele_bob
RT @SunshineKK68: Grief is always there with death. We all cope in different ways. Its important to remember how important the friendships…
Faces of Lung Cancer @LungCancerFaces
@1111linno @JFreemanDaily The three amigas #lcsm
Liza Bernstein @itsthebunk
I have to sign off. Thank you to all for welcoming me. Great topic and great chat! Goodnight! #lcsm
Faces of Lung Cancer @LungCancerFaces
@JFreemanDaily @1111linno You know I'm a party all by myself. Remember that highway patrolman? #lcsm
Bob Steele @steele_bob
RT @JFreemanDaily: T3: Emotional distance would be easier. Then I remember the huge difference a friendly post made for me as a newly-diagn…
Betsy @wildwestannie
RT @fgrazz: @JackWestMD T4 - Let the head lead always...and temper it with the heart ...each gets pulled 'two feet in' if other way around…
Faces of Lung Cancer @LungCancerFaces
@itsthebunk Thanks for joining Liza. We still need to meet asap, OK? #lcsm
Janet Freeman-Daily @JFreemanDaily
T5: sometimes I bury myself in my work, but now & then I just have to sit and feel the losses until the feeling subsides #lcsm https://t.co/tq0TwTTPi2
Eden Lake @EdenLake
Must run all.. flying to nevada for work in morning, must pack still #lcsm
Linnea Olson @1111linno
T5 I cry-I rant and rave and mix a tall drink. I message other lung cancer peeps-those I know I can be honest with; then I soldier on. #lcsm
Janet Freeman-Daily @JFreemanDaily
@JackWestMD T5: I would really like to hear what oncologists do when a patient death hits them hard #lcsm
Linnea Olson @1111linno
@LungCancerFaces @JFreemanDaily @1111linno Oh yeah. #lcsm
Maria Dorski @qua_qua8
RT @EdenLake: T3 I have momentary shut down days.. off grid a day or two lets me recharge without arms-lengthing people/connection #lcsm
Eden Lake @EdenLake
T5 yes @1111linno scotch does help #lcsm
Faces of Lung Cancer @LungCancerFaces
T4: Don't follow my example, but I eat, drink and get depressed. I eventually snap out of it. #lcsm
Frank Ingram, MD @Chucktowndoc
Tears. #lcsm https://t.co/G6o7aTYbXr
Linnea Olson @1111linno
@EdenLake @1111linno We do what we have to do ;) #lcsm
Faces of Lung Cancer @LungCancerFaces
@EdenLake VODKA! @1111linno #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T5: sometimes I bury myself in my work, but now & then I just have to sit and feel the losses until the feeling sub…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T5: sometimes I bury myself in my work, but now & then I just have to sit and feel the losses until the feeling sub…
#LCSM Chat @lcsmchat
RT @1111linno: T5 I cry-I rant and rave and mix a tall drink. I message other lung cancer peeps-those I know I can be honest with; then I s…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @JackWestMD T5: I would really like to hear what oncologists do when a patient death hits them hard #lcsm
Chris Barnes PT, DPT @CBarnesPT
@JackWestMD T5 I try to be mindful - to recognize when I'm hurting, and sit with the emotion. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @Chucktowndoc: Tears. #lcsm https://t.co/G6o7aTYbXr
Janet Freeman-Daily @JFreemanDaily
@Chucktowndoc Thanks for sharing. Do the tears ease the pain? #lcsm
Deb Smith @debsmithbeach
T4 I've become good friends w 1 nurse, see her outside of appts. Have prof, but friendly relationships, w onc & NP. Appts = visiting. #LCSM
Linnea Olson @1111linno
@LungCancerFaces @EdenLake @1111linno drink of choice :) svenksa #lcsm
Faces of Lung Cancer @LungCancerFaces
T5: What do you do, Jack? #lcsm
Laura Greco @lgreco_ny
5) I try to do something constructive. And remember that I am still living and that is a gift. #lcsm
Chris Barnes PT, DPT @CBarnesPT
@EdenLake @JackWestMD T5 amen #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T4: Don't follow my example, but I eat, drink and get depressed. I eventually snap out of it. #lcsm
#LCSM Chat @lcsmchat
RT @Chucktowndoc: Tears. #lcsm https://t.co/G6o7aTYbXr
Timothy Craig Allen @TimAllenMDJD
Grieve. Then get back to work. #lcsm https://t.co/3MCvz3arix
Linnea Olson @1111linno
@lgreco_ny super important. #lcsm
#LCSM Chat @lcsmchat
RT @debsmithbeach: T4 I've become good friends w 1 nurse, see her outside of appts. Have prof, but friendly relationships, w onc & NP. Appt…
#LCSM Chat @lcsmchat
RT @lgreco_ny: 5) I try to do something constructive. And remember that I am still living and that is a gift. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @lgreco_ny: 5) I try to do something constructive. And remember that I am still living and that is a gift. #lcsm
H. Jack West, MD @JackWestMD
@JFreemanDaily @LungCancerFaces I'm afraid that while it saddens me & I feel I connect w/pts, I compartmentalize, then see next pt... #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Grieve. Then get back to work. #lcsm https://t.co/3MCvz3arix
Janet Freeman-Daily @JFreemanDaily
T5: When confronted with a death, I confess to indulging in science fiction movies where the bad guy gets what's coming to them #lcsm
Linnea Olson @1111linno
@TimAllenMDJD <3 And we appreciate that more than you can know. #lcsm
Bob Steele @steele_bob
RT @lgreco_ny: 5) I try to do something constructive. And remember that I am still living and that is a gift. #lcsm
Linnea Olson @1111linno
@JFreemanDaily :) #lcsm
Faces of Lung Cancer @LungCancerFaces
@JackWestMD That's the only way one can survive in that line of work. It's not coldness. @JFreemanDaily @LungCancerFaces #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JackWestMD: @JFreemanDaily @LungCancerFaces I'm afraid that while it saddens me & I feel I connect w/pts, I compartmentalize, then see…
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T5: When confronted with a death, I confess to indulging in science fiction movies where the bad guy gets what's coming…
Frank Ingram, MD @Chucktowndoc
@JFreemanDaily Tears hurt, but you have to feel the pain to be free of it. Eventually memories of lost friends bring on smiles instead. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: @JFreemanDaily @LungCancerFaces I'm afraid that while it saddens me & I feel I connect w/pts, I compartmentalize, then see…
Janet Freeman-Daily @JFreemanDaily
@JackWestMD @LungCancerFaces Commitments and duty don't always make time for grieving. Sometimes we have to schedule it, don't we? #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T5: When confronted with a death, I confess to indulging in science fiction movies where the bad guy gets what's coming…
#LCSM Chat @lcsmchat
RT @LungCancerFaces: @JackWestMD That's the only way one can survive in that line of work. It's not coldness. @JFreemanDaily @LungCancerFa
H. Jack West, MD @JackWestMD
T5) I fear you can't connect so much that it tears you apart. You walk a tightrope, & you bathe in good results when you get them. #lcsm
Bob Steele @steele_bob
RT @LungCancerFaces: T4: Don't follow my example, but I eat, drink and get depressed. I eventually snap out of it. #lcsm
Janet Freeman-Daily @JFreemanDaily
@TimAllenMDJD When your time to grieve is limited during the workday, does the grief ever sneak up on you at unexpected times? #lcsm
Deb Smith @debsmithbeach
T4 I'm in touch with onc, NP, RNs regularly, send articles, ask ?s by email. Over 6 yrs, have wonderful, but prof, relationships. #LCSM
Bob Steele @steele_bob
RT @1111linno: T5 I cry-I rant and rave and mix a tall drink. I message other lung cancer peeps-those I know I can be honest with; then I s…
Fred Gray @fcgiii
Does repeated grief produce symptoms like PTSD? #lcsm
Timothy Craig Allen @TimAllenMDJD
If we didn't care we would not grieve. #lcsm https://t.co/LpkiCnHytI
Linnea Olson @1111linno
@fcgiii OTSD. Ongoing Traumatic Stress Disorder. #lcsm
Faces of Lung Cancer @LungCancerFaces
T5: Try to "Live Live Live!" within reason. I like to have fun. May not be profound, but it works. I raise my glass, think of them. #lcsm
SunshineKK @SunshineKK68
We all need to grieve but at the same time remember that we still have family and friends (or patients) that need us to move on!! #lcsm
#LCSM Chat @lcsmchat
RT @Chucktowndoc: @JFreemanDaily Tears hurt, but you have to feel the pain to be free of it. Eventually memories of lost friends bri…
Bob Steele @steele_bob
RT @EdenLake: T3 I have momentary shut down days.. off grid a day or two lets me recharge without arms-lengthing people/connection #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @JackWestMD @LungCancerFaces Commitments and duty don't always make time for grieving. Sometimes we have to schedule it,…
H. Jack West, MD @JackWestMD
Being able to be part of online community is terrific. But expanded connectivity of SoMe creates new Pandora's box of grief. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: T5) I fear you can't connect so much that it tears you apart. You walk a tightrope, & you bathe in good results when you ge…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @TimAllenMDJD When your time to grieve is limited during the workday, does the grief ever sneak up on you at unexpected…
Flemming Rasmussen @fgrazz
T5 - Manage emotions-mainly by reviewing as best poss the path that they fol & investing 'loss' energy in more rsrch & fresh paths #lcsm
#LCSM Chat @lcsmchat
RT @debsmithbeach: T4 I'm in touch with onc, NP, RNs regularly, send articles, ask ?s by email. Over 6 yrs, have wonderful, but prof, relat…
Liza Bernstein @itsthebunk
@LungCancerFaces YES!! #LCSM
#LCSM Chat @lcsmchat
RT @fcgiii: Does repeated grief produce symptoms like PTSD? #lcsm
Timothy Craig Allen @TimAllenMDJD
Absolutely. No longer suprises me. #lcsm https://t.co/Cegwqe9Ito
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: If we didn't care we would not grieve. #lcsm https://t.co/LpkiCnHytI
#LCSM Chat @lcsmchat
RT @1111linno: @fcgiii OTSD. Ongoing Traumatic Stress Disorder. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: T5: Try to "Live Live Live!" within reason. I like to have fun. May not be profound, but it works. I raise my glass, t…
#LCSM Chat @lcsmchat
RT @SunshineKK68: We all need to grieve but at the same time remember that we still have family and friends (or patients) that need us to m…
#LCSM Chat @lcsmchat
RT @JackWestMD: Being able to be part of online community is terrific. But expanded connectivity of SoMe creates new Pandora's box of grief…
#LCSM Chat @lcsmchat
RT @fgrazz: T5 - Manage emotions-mainly by reviewing as best poss the path that they fol & investing 'loss' energy in more rsrch & fresh pa…
Drew Moghanaki @DrewMoghanaki
@LungCancerFaces @steele_bob Not as late as me. Was helping a Vet with stage IV. Hi everyone. #lcsm
Timothy Craig Allen @TimAllenMDJD
Wouldn't miss it though. #lcsm https://t.co/Iq6WYpGVJ7
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Absolutely. No longer suprises me. #lcsm https://t.co/Cegwqe9Ito
Bob Steele @steele_bob
RT @JackWestMD: Being able to be part of online community is terrific. But expanded connectivity of SoMe creates new Pandora's box of grief…
H. Jack West, MD @JackWestMD
It's about time for closing thoughts. Come up w/something to solve these issues -- be profound! #lcsm
Deb Smith @debsmithbeach
@1111linno T4 I feel like this too. That trust is so important. Improves my care, I think. #LCSM
Vince D. Cataldo, MD @vincedcataldo
RT @JAMADerm: 14 patients in anti-PD-1/anti-PD-L1 therapy for #lungcancer have shown hair repigmentation during Tx…
Betsy @wildwestannie
@Chucktowndoc @JFreemanDaily To get across the mountain you must first walk to it. #lcsm
Drew Moghanaki @DrewMoghanaki
@LungCancerFaces @JFreemanDaily @1111linno Be mine! #lcsm
Faces of Lung Cancer @LungCancerFaces
@DrewMoghanaki Hi Drew! You typed the magic words. Forgiven! @LungCancerFaces @steele_bob #lcsm
Janet Freeman-Daily @JFreemanDaily
@TimAllenMDJD I find that comforting, knowing others have the grief sneak up at odd times. Thanks. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Wouldn't miss it though. #lcsm https://t.co/Iq6WYpGVJ7
#LCSM Chat @lcsmchat
RT @JackWestMD: It's about time for closing thoughts. Come up w/something to solve these issues -- be profound! #lcsm
#LCSM Chat @lcsmchat
RT @debsmithbeach: @1111linno T4 I feel like this too. That trust is so important. Improves my care, I think. #LCSM
#LCSM Chat @lcsmchat
RT @wildwestannie: @Chucktowndoc @JFreemanDaily To get across the mountain you must first walk to it. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @TimAllenMDJD I find that comforting, knowing others have the grief sneak up at odd times. Thanks. #lcsm
SOTS @sparkyontheseas
@LungCancerFaces I take an Ativan. #lcsm
Bob Steele @steele_bob
RT @1111linno: @fcgiii OTSD. Ongoing Traumatic Stress Disorder. #lcsm
Drew Moghanaki @DrewMoghanaki
@LungCancerFaces I've never understood why many docs prefer to "talk at" instead of "talk with" their patients. I love learning from all of them. #lcsm
Janet Freeman-Daily @JFreemanDaily
CT: When we choose to care about and help late stage cancer patients, we open ourselves to future grief, but we invest in LIVING. #lcsm
Linnea Olson @1111linno
T5 One reason I embrace battle analogies is it helps me deal with loss-this is war, and as long as I am able, I will keep on fighting. #lcsm
Bob Steele @steele_bob
RT @JFreemanDaily: @TimAllenMDJD I find that comforting, knowing others have the grief sneak up at odd times. Thanks. #lcsm
Faces of Lung Cancer @LungCancerFaces
@sparkyontheseas Oh, honey, I want my first grandchild named that. xo #lcsm
Laura Greco @lgreco_ny
Give the grief its due, and use it for good. #lcsm
Bob Steele @steele_bob
RT @JFreemanDaily: CT: When we choose to care about and help late stage cancer patients, we open ourselves to future grief, but we invest i…
Nay @ChancesR3
@JackWestMD No pressure right? :) #lcsm
H. Jack West, MD @JackWestMD
I know this was a ttough chat, but it's better to face challenges together. Thx for joining & offering your perspectives, everyone. #lcsm
Timothy Craig Allen @TimAllenMDJD
Nothing to solve. Grief is part of the human condition, the beauty of life. Continue to care. #lcsm keeps us from being alone with our grief https://t.co/irbVRsHVrh
#LCSM Chat @lcsmchat
RT @sparkyontheseas: @LungCancerFaces I take an Ativan. #lcsm
#LCSM Chat @lcsmchat
RT @DrewMoghanaki: @LungCancerFaces I've never understood why many docs prefer to "talk at" instead of "talk with" their patients. I l…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: CT: When we choose to care about and help late stage cancer patients, we open ourselves to future grief, but we invest i…
#LCSM Chat @lcsmchat
RT @1111linno: T5 One reason I embrace battle analogies is it helps me deal with loss-this is war, and as long as I am able, I will keep on…
Nay @ChancesR3
RT @JFreemanDaily: CT: When we choose to care about and help late stage cancer patients, we open ourselves to future grief, but we invest i…
#LCSM Chat @lcsmchat
RT @lgreco_ny: Give the grief its due, and use it for good. #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: I know this was a ttough chat, but it's better to face challenges together. Thx for joining & offering your perspectives, e…
Bob Steele @steele_bob
RT @DrewMoghanaki: @LungCancerFaces @steele_bob Not as late as me. Was helping a Vet with stage IV. Hi everyone. #lcsm
H. Jack West, MD @JackWestMD
We'll have our next talk again in 2 weeks, same day & time, probably lighter fare as a subject. Look for transcript soon. Thx! #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: CT: When we choose to care about and help late stage cancer patients, we open ourselves to future grief, but we invest i…
Nay @ChancesR3
@JackWestMD Thank you for leading a thoughtful chat! #lcsm
Flemming Rasmussen @fgrazz
@JackWestMD Closing - Take the Frank Sinatra mantra and do it 'your' way...just make sure you do 'it' #lcsm
Timothy Craig Allen @TimAllenMDJD
#BattleOn #lcsm https://t.co/57Kgt9tOQc
Bob Steele @steele_bob
RT @JFreemanDaily: @JackWestMD @LungCancerFaces Commitments and duty don't always make time for grieving. Sometimes we have to schedule it,…
SunshineKK @SunshineKK68
Perfect statement Janet RT @JFreemanDaily: CT: ...... but we invest in LIVING. #lcsm
Bob Steele @steele_bob
RT @fgrazz: @JackWestMD Closing - Take the Frank Sinatra mantra and do it 'your' way...just make sure you do 'it' #lcsm
Faces of Lung Cancer @LungCancerFaces
I love lung cancer people, this community, our interactions. I am a better person for knowing each of you. Grief is part that gift. #lcsm
Timothy Craig Allen @TimAllenMDJD
It was a privilege to participate. #lcsm https://t.co/UOAZfXYIE7
Drew Moghanaki @DrewMoghanaki
@JackWestMD I say say go for it and be as honest as you can be. We are all just people helping each other. #lcsm
Drew Moghanaki @DrewMoghanaki
RT @LungCancerFaces: I love lung cancer people, this community, our interactions. I am a better person for knowing each of you. Grief is pa…
Bob Steele @steele_bob
RT @DrewMoghanaki: @JackWestMD I say say go for it and be as honest as you can be. We are all just people helping each other. #lcsm
Faces of Lung Cancer @LungCancerFaces
Thanks for moderating @JackWestMD. Great blog post, too. Next week will be our 4th?? anniversary chat. Where does the time go? #lcsm
Frank Ingram, MD @Chucktowndoc
Time to put the kids to bed. Peace and love to you, friends. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Nothing to solve. Grief is part of the human condition, the beauty of life. Continue to care. #lcsm keeps us from b…
Timothy Craig Allen @TimAllenMDJD
Back atcha #lcsm https://t.co/XEUWPRRhmb
Bob Steele @steele_bob
RT @LungCancerFaces: I love lung cancer people, this community, our interactions. I am a better person for knowing each of you. Grief is pa…
Janet Freeman-Daily @JFreemanDaily
@JackWestMD Thanks for tackling such a tough subject and moderating. Thanks everyone for joining during summer vacation! #lcsm
#LCSM Chat @lcsmchat
RT @JackWestMD: We'll have our next talk again in 2 weeks, same day & time, probably lighter fare as a subject. Look for transcript soon. T…
H. Jack West, MD @JackWestMD
RT @DrewMoghanaki: @JackWestMD I say say go for it and be as honest as you can be. We are all just people helping each other. #lcsm
#LCSM Chat @lcsmchat
RT @fgrazz: @JackWestMD Closing - Take the Frank Sinatra mantra and do it 'your' way...just make sure you do 'it' #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: #BattleOn #lcsm https://t.co/57Kgt9tOQc
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: @TimAllenMDJD I find that comforting, knowing others have the grief sneak up at odd times. Thanks. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: I love lung cancer people, this community, our interactions. I am a better person for knowing each of you. Grief is pa…
#LCSM Chat @lcsmchat
RT @DrewMoghanaki: @JackWestMD I say say go for it and be as honest as you can be. We are all just people helping each other. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: Thanks for moderating @JackWestMD. Great blog post, too. Next week will be our 4th?? anniversary chat. Where does the…
Mark Fitzgerald @Mfitzg79Mark
RT @AndyBiotech: Whoa that's a nice side effect to have! https://t.co/iQSxeNRWMC But anti-PD1 also causes vitiligo? hmm... https://t.co/Gt…
Drew Moghanaki @DrewMoghanaki
Here's a doc who truly gets it. Any trainee would be blessed to learn from him. #lcsm https://t.co/AWFRVY0icH
#LCSM Chat @lcsmchat
RT @DrewMoghanaki: Here's a doc who truly gets it. Any trainee would be blessed to learn from him. #lcsm https://t.co/AWFRVY0icH
Bob Steele @steele_bob
RT @JackWestMD: I know this was a ttough chat, but it's better to face challenges together. Thx for joining & offering your perspectives, e…
Deb Smith @debsmithbeach
@JackWestMD @lcsmchat @JFreemanDaily @LungCancerFaces I see how that's necessary. An RN told me it was worse 30 yrs ago when most LC pts died in months. Having yrs to dev a rel is a gift. #LCSM
Bob Steele @steele_bob
RT @DrewMoghanaki: Here's a doc who truly gets it. Any trainee would be blessed to learn from him. #lcsm https://t.co/AWFRVY0icH
Faces of Lung Cancer @LungCancerFaces
That's wonderful! #lcsm https://t.co/SnbrcBqnUv
Drew Moghanaki @DrewMoghanaki
@GERI1365 Bingo. So many of our pts don't even have a single example to draw upon. They are at the lead of a journey they never asked for. #lcsm
Flemming Rasmussen @fgrazz
@LungCancerFaces wouldn't even know to 'drop by' if #LCSM didn't always have the porch-light on for a wandering 🇨🇦
#LCSM Chat @lcsmchat
RT @debsmithbeach: @JackWestMD @lcsmchat @JFreemanDaily @LungCancerFaces I see how that's necessary. An RN told me it was worse 30 yrs…
#LCSM Chat @lcsmchat
RT @DrewMoghanaki: @GERI1365 Bingo. So many of our pts don't even have a single example to draw upon. They are at the lead of a journe…
Chris Barnes PT, DPT @CBarnesPT
RT @JFreemanDaily: CT: When we choose to care about and help late stage cancer patients, we open ourselves to future grief, but we invest i…
#LCSM Chat @lcsmchat
RT @LungCancerFaces: That's wonderful! #lcsm https://t.co/SnbrcBqnUv
#LCSM Chat @lcsmchat
RT @fgrazz: @LungCancerFaces wouldn't even know to 'drop by' if #LCSM didn't always have the porch-light on for a wandering 🇨🇦
Bob Steele @steele_bob
Good evening kind folks. Look forward to seeing you again in 2 weeks. #lcsm
Chris Barnes PT, DPT @CBarnesPT
@JFreemanDaily @ChancesR3 Beautifully said. #lcsm
Deb Smith @debsmithbeach
RT @JFreemanDaily: CT: When we choose to care about and help late stage cancer patients, we open ourselves to future grief, but we invest i…
kakukkelly @kmichelle1969
RT @1111linno: T3 Lung cancer is not for the meek; nor is being part of the lung cancer community. Emotional distance is not an option. #lc
Chris Barnes PT, DPT @CBarnesPT
@JFreemanDaily @ChancesR3 Beautifully said #lcsm
Janet Freeman-Daily @JFreemanDaily
Transcript for 7/13 #LCSM Chat on "Balancing Connection to Others in the Cancer Community with the Risk of Loss": https://t.co/JEDHBTndBI
Deb Smith @debsmithbeach
Making connections makes us human. Death & grief are part of life. Thanks to all of you! #LCSM
Kristine Ellison @ke623582
RT @EdenLake: T5 yes @1111linno scotch does help #lcsm
#LCSM Chat @lcsmchat
RT @debsmithbeach: Making connections makes us human. Death & grief are part of life. Thanks to all of you! #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Transcript for 7/13 #LCSM Chat on "Balancing Connection to Others in the Cancer Community with the Risk of Loss": https:…
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