#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Janet Freeman-Daily @JFreemanDaily Welcome to #LCSM Chat! Tonight we will be discussing “The Path to Research Advocacy.” More info on this topic at https://t.co/eXGpOSSueY |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Path to Research Advocacy.” More info on this topic at https://t.co/eXGpOSSueY |
| Janet Freeman-Daily @JFreemanDaily @wi_qiong Hi Christine. Just filter the tweets for #LCSM. When you post, be sure to include #LCSM in your tweet so others can see it in the chat. |
 | Adela @adelapoite RT @IASLC: Merck’s KEYTRUDA® (pembrolizumab) approved as monotherapy in #China for first-line treatment of certain patients with advanced #NSCLC whose tumors express PD-L1. Approval based on KEYNOTE-042, including China extension study presented at #WCLC19. #LCSM https://t.co/pS8qzZzh0M |
 | Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Path to Research Advocacy.” More info on this topic at https://t.co/eXGpOSSueY |
 | Bob Steele @steele_bob Good evening folks! Bob here in Greensboro, NC. Looking forward to learning and sharing for this Twitter Chat Session. #lcsm |
| Bob Steele @steele_bob RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Path to Research Advocacy.” More info on this topic at https://t.co/eXGpOSSueY |
| Janet Freeman-Daily @JFreemanDaily RT @bjork5: Great topic! Did I mention I love research? 🙌 #LCSM #innovation @JFreemanDaily @lcsmchat @KeithSpiro |
 | Jennifer Potash @JenniferPotash RT @kristi_rosa3: CLEVELAND: CLEVELAND: the birthplace of Superman and the home of tonight’s State of the Science Summit on Lung Cancer! Very excited to sit down with faculty from @ClevelandClinic tonight. Stay tuned for more. #stateofscience #lcsm https://t.co/TZn4Czq24J |
| Faces of Lung Cancer @LungCancerFaces Deana in sunny Los Angeles here! I’ll be tweeting tonight from the @lcsmchat account. #lcsm |
| Janet Freeman-Daily @JFreemanDaily We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
 | Matthew Katz, MD 🟦 @subatomicdoc Good evening! Matt Katz, radiation oncologist in New England. Hi everyone #lcsm |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #lcsm |
| Janet Freeman-Daily @JFreemanDaily @subatomicdoc Hey Matt! Nice to see you in #LCSM Chat again. |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
 | Kristin Ito @KAdvocate_LCAM Kristin Ito, here! Ready to join after a two hour commute home...😬 #lcsm |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Path to Research Advocacy.” More info on this topic at https://t.co/eXGpOSSueY |
 | KC Dill @kasedill Hello from Houston, excited to learn about research advocacy #lcsm |
| Janet Freeman-Daily @JFreemanDaily @KAdvocate_LCAM OMG, that's awful! Glad you could join us. With all the football on tonight, it might be a quiet crowd. ;) #LCSM |
 | Loves Mashed Potatoes @glostaMAssachu Hello! Betsy from chilly New England here #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc @JFreemanDaily Hi Janet! Nice to be here for #lcsm. How are you? |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here. Hailing from New Jersey tonight as I get ready for #CBCIV! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @kasedill Hi KC! #LCSM |
| Bob Steele @steele_bob It was 95 here today. 98 on Sunday... #lcsm |
| Janet Freeman-Daily @JFreemanDaily If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @steele_bob Hi Bob. Yikes! That doesn't sound like autumn to me #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
| Kristin Ito @KAdvocate_LCAM RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
 | Laura Greco @lgreco_ny @JFreemanDaily Laura here #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them #lcsm |
| KC Dill @kasedill @lgreco_ny @JFreemanDaily Hi Laura #lcsm |
| Janet Freeman-Daily @JFreemanDaily @subatomicdoc I'm doing well, considering our Seattle summer converted to fall with a loud "thud" last week. #lcsm |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience |
 | Peggy Dennis @peggyddennis Peggy here from Denver. Listening in while driving to the mountains. Spotty reception at best but views are spectacular #lcsm |
 | Allison Carroll, PhD (she/her) @ACarrollPhD RT @EK_Drake: Thrilled to announce that #AYACSM (Adolescent and Young Adult Cancer Societal Movement) will be partnering with #BehavioralMedChat next month to bring you a special chat on #AYACancer in the #Digital age Cc: #MedTwitter #BTSM #BCSM #LCSM #GYNCSM @theNCI https://t.co/SIKk4j2VDo |
| Janet Freeman-Daily @JFreemanDaily Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Howdy! #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @lgreco_ny @JFreemanDaily Hi Laura! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience |
| Janet Freeman-Daily @JFreemanDaily I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Note: Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #lcsm |
| Janet Freeman-Daily @JFreemanDaily We’ll start with Topic T1 in a minute … #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We’ll start with Topic T1 in a minute … #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @TimAllenMDJD Hi Tim! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: What is cancer research advocacy, and how is it different from patient advocacy? #LCSM |
 | Deb Smith 🌻🟧 @debsmithbeach @JFreemanDaily Deb from NH here. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: What is cancer research advocacy, and how is it different from patient advocacy? #LCSM |
| KC Dill @kasedill @TimAllenMDJD Hello Dr. Allen.#Lcsm. |
| Janet Freeman-Daily @JFreemanDaily T1: Patient advocates provide support and resources to patients and caregivers, act as liaisons between patients and clinicians, raise awareness and educate others about their disease, and fundraise for research. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Sup, Matt! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: Research advocates are volunteers with a personal connection to cancer who are passionate about helping translate research into meaningful outcomes. They provide the perspective of their collective patient community. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: Patient advocates provide support and resources to patients and caregivers, act as liaisons between patients and clinicians, raise awareness and educate others about their disease, and fundraise for research. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Hope you are doing well, @kasedill! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: Research advocates are volunteers with a personal connection to cancer who are passionate about helping translate research into meaningful outcomes. They provide the perspective of their collective patient community. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info and research findings, brings pt perspective on research activities to sci advisory boards and committees. #LCSM |
 | Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Please excuse some impending excessive tweeting! I am joining the awesomeness that is the #lcsm tweetchat for a brief bit to talk about research advocacy. Join the conversation or just listen in and learn! cc: #bcsm #gyncsm #hcldr #SurvOnc #OncoAlert |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info and research findings, brings pt perspective on research activities to sci advisory boards and committees. #LCSM |
| Kristin Ito @KAdvocate_LCAM @JFreemanDaily Would policy work be considered, just "advocacy?" I'm curious how others see this. #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @TimAllenMDJD Not much! Doing well and hoping for more pathology consult patients for @lijjoseph and the trial #lcsm |
| KC Dill @kasedill @TimAllenMDJD Feeling great, I scan on the 14th. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @coffeemommy Stacey! Long time no tweet-connect. Good to see you here. Hope you'll share your awesome research advocate experiences. #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: T1: T1: Research advocates are volunteers with a personal connection to cancer who are passionate about helping translate research into meaningful outcomes. They provide the perspective of their collective patient community. #LCSM |
 | Terri Coutee @6state RT @JFreemanDaily: T1: T1: Research advocates are volunteers with a personal connection to cancer who are passionate about helping translate research into meaningful outcomes. They provide the perspective of their collective patient community. #LCSM |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @JFreemanDaily Patient advocates provide support & resources to the patient community. Research advocates provide input, guidance and perspective to the research process. Spoiler Alert: an advocate CAN do both! T1 #lcsm #bcsm #gyncsm #hcldr |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: T1: T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info and research findings, brings pt perspective on research activities to sci advisory boards and committees. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Patient advocacy includes addressing health disparities, providing for the underserved, and increasing healthcare value and patient safety. #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @KAdvocate_LCAM: @JFreemanDaily Would policy work be considered, just "advocacy?" I'm curious how others see this. #lcsm |
| Laura Greco @lgreco_ny RT @coffeemommy: @JFreemanDaily Patient advocates provide support & resources to the patient community. Research advocates provide input, guidance and perspective to the research process. Spoiler Alert: an advocate CAN do both! T1 #lcsm #bcsm #gyncsm #hcldr |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @coffeemommy: @JFreemanDaily Patient advocates provide support & resources to the patient community. Research advocates provide input, guidance and perspective to the research process. Spoiler Alert: an advocate CAN do both! T1 #lcsm #bcsm #gyncsm #hcldr |
| Janet Freeman-Daily @JFreemanDaily @KAdvocate_LCAM T1: Good question, Kristin. IMHO, if someone is responding to requests to contact policy makers and boosting the signal about policy, that's patient advocacy. If they're using their knowledge of research to drive policy change, that's research advocacy. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD My best to you, @kasedill. #lcsm |
| Loves Mashed Potatoes @glostaMAssachu RT @TimAllenMDJD: Patient advocacy includes addressing health disparities, providing for the underserved, and increasing healthcare value and patient safety. #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @JFreemanDaily Ironically I was just evaluating another research proposal and that had me online at the perfect time to be distracted by #lcsm - {hugs} all around! |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: @KAdvocate_LCAM T1: @KAdvocate_LCAM T1: Good question, Kristin. IMHO, if someone is responding to requests to contact policy makers and boosting the signal about policy, that's patient advocacy. If they're using their knowledge of research to drive policy change, that's research advocacy. #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @JFreemanDaily Would policy work be considered, just "advocacy?" I'm curious how others see this. #lcsm |
| #LCSM Chat @lcsmchat RT @coffeemommy: @JFreemanDaily Patient advocates provide support & resources to the patient community. Research advocates provide input, guidance and perspective to the research process. Spoiler Alert: an advocate CAN do both! T1 #lcsm #bcsm #gyncsm #hcldr |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD 2d that @subatomicdoc #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Patient advocacy includes addressing health disparities, providing for the underserved, and increasing healthcare value and patient safety. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @KAdvocate_LCAM T1: @KAdvocate_LCAM T1: Good question, Kristin. IMHO, if someone is responding to requests to contact policy makers and boosting the signal about policy, that's patient advocacy. If they're using their knowledge of research to drive policy change, that's research advocacy. #LCSM |
| Laura Greco @lgreco_ny @JFreemanDaily @KAdvocate_LCAM IMO, I think policy decisions are patient advocacy. I think there always is a need to be literate in research. It informs everything. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T1: T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info and research findings, brings pt perspective on research activities to sci advisory boards and committees. #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @JFreemanDaily @KAdvocate_LCAM IMO, I think policy decisions are patient advocacy. I think there always is a need to be literate in research. It informs everything. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #lcsm is a great team! |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD T1: Agree--addressing health disparities and improving quality of care is a huge part of patient advocacy. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lgreco_ny: @JFreemanDaily @KAdvocate_LCAM IMO, I think policy decisions are patient advocacy. I think there always is a need to be literate in research. It informs everything. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TimAllenMDJD T1: @TimAllenMDJD T1: Agree--addressing health disparities and improving quality of care is a huge part of patient advocacy. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @KAdvocate_LCAM T1: @KAdvocate_LCAM T1: Good question, Kristin. IMHO, if someone is responding to requests to contact policy makers and boosting the signal about policy, that's patient advocacy. If they're using their knowledge of research to drive policy change, that's research advocacy. #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @TimAllenMDJD: Patient advocacy includes addressing health disparities, providing for the underserved, and increasing healthcare value and patient safety. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @lgreco_ny @KAdvocate_LCAM Some policy requires literacy in research--like changing FDA regulations to allow drug approvals based on Phase 2 trials instead of Phase 3. #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @lgreco_ny: @JFreemanDaily @KAdvocate_LCAM IMO, I think policy decisions are patient advocacy. I think there always is a need to be literate in research. It informs everything. #lcsm |
 | Lisa Briggs @livinglife82 Systematic tracking of PROs can help #patients & #clinicians to partner so that they stay on top of #symptoms, which in turn can improve #treatment effectiveness & the #PatientExperience #LCSM #QoL #NurseNavigator #PatientEmpowerment #WinWin #Burden #lungcancer #SupportiveCare |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @TimAllenMDJD OOOH! And research advocacy can play a role in designing studies that are more inclusive of a diverse population. So, in a way, they can both address disparities. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: What skills do research advocates need to advance research? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @lgreco_ny @KAdvocate_LCAM Some policy requires literacy in research--like changing FDA regulations to allow drug approvals based on Phase 2 trials instead of Phase 3. #LCSM |
 | Alejandro Bribriesco @abribriesco43 Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSCLC -#ROS1 testing infrequent w/ very favorable results #LCSM #StateOfScience @OncLiveSOSS https://t.co/kMemMjAf6q |
| #LCSM Chat @lcsmchat RT @coffeemommy: @TimAllenMDJD OOOH! And research advocacy can play a role in designing studies that are more inclusive of a diverse population. So, in a way, they can both address disparities. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: What skills do research advocates need to advance research? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD And one mighty aim of research advocacy is to boost research funding. One hurdle is continuing stigma. #lcsm #NoStigma |
| Janet Freeman-Daily @JFreemanDaily RT @livinglife82: Systematic tracking of PROs can help #patients & #clinicians to partner so that they stay on top of #symptoms, which in turn can improve #treatment effectiveness & the #PatientExperience #LCSM #QoL #NurseNavigator #PatientEmpowerment #WinWin #Burden #lungcancer #SupportiveCare |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: T2: T2: What skills do research advocates need to advance research? #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: And one mighty aim of research advocacy is to boost research funding. One hurdle is continuing stigma. #lcsm #NoStigma |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Word #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: T2: What skills do research advocates need to advance research? #lcsm |
| Bob Steele @steele_bob T1: I always introduce myself as a lung cancer advocate & stress critical need for funding research. Also support other types. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: Research advocates need desire to make things better, ability to represent all patients (not just their own personal story), and good communications skills. #LCSM |
 | Jill Feldman @jillfeldman4 T2 Research advocates need to be educated on basic science, the process, be able to communicate clear messages, speak for the collective voice & be confident interacting with researchers and doctors #lcsm |
| #LCSM Chat @lcsmchat RT @steele_bob: T1: T1: I always introduce myself as a lung cancer advocate & stress critical need for funding research. Also support other types. #lcsm |
| Laura Greco @lgreco_ny RT @jillfeldman4: T2 Research advocates need to be educated on basic science, the process, be able to communicate clear messages, speak for the collective voice & be confident interacting with researchers and doctors #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: Research advocates need desire to make things better, ability to represent all patients (not just their own personal story), and good communications skills. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 Research advocates need to be educated on basic science, the process, be able to communicate clear messages, speak for the collective voice & be confident interacting with researchers and doctors #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: Research advocates need willingness to learn the basics of science, research, and treatments, and ability to work collaboratively with other. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD The ability to tell your story. #lcsm |
 | Nathan A. Pennell MD, PhD, FASCO @n8pennell RT @abribriesco43: Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSCLC -#ROS1 testing infrequent w/ very favorable results #LCSM #StateOfScience @OncLiveSOSS https://t.co/kMemMjAf6q |
| Matthew Katz, MD 🟦 @subatomicdoc @JFreemanDaily Needed skills for research advocates: 1. Good understanding to interpret research findings 2. Ability to clearly explain value of new research projects 3. Persistence #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: Research advocates need willingness to learn the basics of science, research, and treatments, and ability to work collaboratively with other. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: The ability to tell your story. #lcsm |
 | Christine Qiong Wu @CQiongWu @JFreemanDaily @lgreco_ny @KAdvocate_LCAM Forgot #LCSM |
| #LCSM Chat @lcsmchat RT @subatomicdoc: @JFreemanDaily Needed skills for research advocates: 1. Good understanding to interpret research findings 2. Ability to clearly explain value of new research projects 3. Persistence #lcsm |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD Actually, I put the ability to tell your story in Patient Advocacy, not Research Advocacy. Research Advocates might share a tiny snip of their story to make a point, but it's not about THEM. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Absolutely! And then make sure policymakers here you! #lcsm |
| Kristin Ito @KAdvocate_LCAM @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with yourself while trying to learn about such a HUGE topic and stay determined by asking questions and challenging the norm. #lcsm Also, stay curious :) |
 | OncologyEducation @OncEd Dr. Jeffrey Bogart discusses the results from the CALGB 30610 (ALLIANCE) trial for patients with limited stage small cell lung cancer in this video update from #ESMO19: https://t.co/rEYdxVCrYk #LCSM #SCLC https://t.co/QJSrh7jxbF |
| Jill Feldman @jillfeldman4 T2 It is also important for research advocates have to have the ability to take the science & disseminate that info into their community in a way people can understand #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy IMO there are three spheres of advocacy and much Venn-like overlap. Patient advocacy, Research advocacy & Policy advocacy. They are separate but impact each other. An individual advocate can focus on one area or all the areas - different skills, different communities. T1 #lcsm |
| KC Dill @kasedill RT @jillfeldman4: T2 Research advocates need to be educated on basic science, the process, be able to communicate clear messages, speak for the collective voice & be confident interacting with researchers and doctors #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: Also helps for research advocates to be comfortable interacting with scientists, clinicians, and researchers, be able to briefly summarize the issues, and keep comments focused on the topic at hand. #LCSM |
| KC Dill @kasedill RT @JFreemanDaily: T2: T2: Research advocates need willingness to learn the basics of science, research, and treatments, and ability to work collaboratively with other. #LCSM |
| Laura Greco @lgreco_ny @subatomicdoc @JFreemanDaily t2: ability to see the "so what" in research and translate it to greater community. Sometimes though the "so what" is missing from research! #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @TimAllenMDJD: And one mighty aim of research advocacy is to boost research funding. One hurdle is continuing stigma. #lcsm #NoStigma |
 | John Suh @DrJohnSuh RT @abribriesco43: Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSCLC -#ROS1 testing infrequent w/ very favorable results #LCSM #StateOfScience @OncLiveSOSS https://t.co/kMemMjAf6q |
| Matthew Katz, MD 🟦 @subatomicdoc RT @lgreco_ny: @subatomicdoc @JFreemanDaily t2: @subatomicdoc @JFreemanDaily t2: ability to see the "so what" in research and translate it to greater community. Sometimes though the "so what" is missing from research! #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: T2: T2: Also helps for research advocates to be comfortable interacting with scientists, clinicians, and researchers, be able to briefly summarize the issues, and keep comments focused on the topic at hand. #LCSM |
| KC Dill @kasedill RT @KAdvocate_LCAM: @JFreemanDaily T2: @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with yourself while trying to learn about such a HUGE topic and stay determined by asking questions and challenging the norm. #lcsm Also, stay curious :) |
| Matthew Katz, MD 🟦 @subatomicdoc RT @coffeemommy: IMO there are three spheres of advocacy and much Venn-like overlap. Patient advocacy, Research advocacy & Policy advocacy. They are separate but impact each other. An individual advocate can focus on one area or all the areas - different skills, different communities. T1 #lcsm |
| Bob Steele @steele_bob T2: Find it very helpful to share treatment breakthroughs & how every dollar helps. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TimAllenMDJD Actually, I put the ability to tell your story in Patient Advocacy, not Research Advocacy. Research Advocates might share a tiny snip of their story to make a point, but it's not about THEM. #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @jillfeldman4: T2 It is also important for research advocates have to have the ability to take the science & disseminate that info into their community in a way people can understand #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Perhaps. But I find stories always compelling. Moreso in a place where stigma must continue to be overcome. #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @KAdvocate_LCAM: @JFreemanDaily T2: @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with yourself while trying to learn about such a HUGE topic and stay determined by asking questions and challenging the norm. #lcsm Also, stay curious :) |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @TimAllenMDJD Actually, I put the ability to tell your story in Patient Advocacy, not Research Advocacy. Research Advocates might share a tiny snip of their story to make a point, but it's not about THEM. #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @JFreemanDaily T2: @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with yourself while trying to learn about such a HUGE topic and stay determined by asking questions and challenging the norm. #lcsm Also, stay curious :) |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 It is also important for research advocates have to have the ability to take the science & disseminate that info into their community in a way people can understand #lcsm |
| #LCSM Chat @lcsmchat RT @coffeemommy: IMO there are three spheres of advocacy and much Venn-like overlap. Patient advocacy, Research advocacy & Policy advocacy. They are separate but impact each other. An individual advocate can focus on one area or all the areas - different skills, different communities. T1 #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: Also helps for research advocates to be comfortable interacting with scientists, clinicians, and researchers, be able to briefly summarize the issues, and keep comments focused on the topic at hand. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @subatomicdoc: @JFreemanDaily Needed skills for research advocates: 1. Good understanding to interpret research findings 2. Ability to clearly explain value of new research projects 3. Persistence #lcsm |
| Janet Freeman-Daily @JFreemanDaily @coffeemommy Definitely different skills. A Patient Advocate has to get past telling THEIR story and into understanding needs of their entire disease community to be an effective Research Advocate or Policy Advocate. #LCSM |
| Christine Qiong Wu @CQiongWu @lgreco_ny @JFreemanDaily @KAdvocate_LCAM So patient advocacy are different from research advocacy, but are overlaping. #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @subatomicdoc @JFreemanDaily t2: @subatomicdoc @JFreemanDaily t2: ability to see the "so what" in research and translate it to greater community. Sometimes though the "so what" is missing from research! #lcsm |
| #LCSM Chat @lcsmchat RT @steele_bob: T2: T2: Find it very helpful to share treatment breakthroughs & how every dollar helps. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Perhaps. But I find stories always compelling. Moreso in a place where stigma must continue to be overcome. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @coffeemommy Definitely different skills. A Patient Advocate has to get past telling THEIR story and into understanding needs of their entire disease community to be an effective Research Advocate or Policy Advocate. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @coffeemommy: IMO there are three spheres of advocacy and much Venn-like overlap. Patient advocacy, Research advocacy & Policy advocacy. They are separate but impact each other. An individual advocate can focus on one area or all the areas - different skills, different communities. T1 #lcsm |
| #LCSM Chat @lcsmchat RT @wi_qiong: @lgreco_ny @JFreemanDaily @KAdvocate_LCAM So patient advocacy are different from research advocacy, but are overlaping. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jillfeldman4: T2 It is also important for research advocates have to have the ability to take the science & disseminate that info into their community in a way people can understand #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KAdvocate_LCAM: @JFreemanDaily T2: @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with yourself while trying to learn about such a HUGE topic and stay determined by asking questions and challenging the norm. #lcsm Also, stay curious :) |
| Kristin Ito @KAdvocate_LCAM @jillfeldman4 Yes! The ability to summarize what you have read or heard, and then share... that is a big piece. #lcsm |
 | Dave Bjork @bjork5 @JFreemanDaily Hey sorry I’m late! Dave here from Boston 🙌 #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: T2: Research advocates need willingness to learn the basics of science, research, and treatments, and ability to work collaboratively with other. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jillfeldman4: T2 Research advocates need to be educated on basic science, the process, be able to communicate clear messages, speak for the collective voice & be confident interacting with researchers and doctors #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: T2: Research advocates need desire to make things better, ability to represent all patients (not just their own personal story), and good communications skills. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @steele_bob: T1: T1: I always introduce myself as a lung cancer advocate & stress critical need for funding research. Also support other types. #lcsm |
| Laura Greco @lgreco_ny @JFreemanDaily @coffeemommy I would argue that the best patient advocates need to get past their own story as well. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: T2: Also helps for research advocates to be comfortable interacting with scientists, clinicians, and researchers, be able to briefly summarize the issues, and keep comments focused on the topic at hand. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lgreco_ny: @subatomicdoc @JFreemanDaily t2: @subatomicdoc @JFreemanDaily t2: ability to see the "so what" in research and translate it to greater community. Sometimes though the "so what" is missing from research! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @steele_bob: T2: T2: Find it very helpful to share treatment breakthroughs & how every dollar helps. #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @JFreemanDaily Urgency + Patience. T2 (And then yes, understanding of basic science concepts) Knowing how and when to use your "outside voice" helps. Patients in the Research Advocate role are frequently under utilized b/c people forget we have life skills other than being patients. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @coffeemommy Definitely different skills. A Patient Advocate has to get past telling THEIR story and into understanding needs of their entire disease community to be an effective Research Advocate or Policy Advocate. #LCSM |
| Janet Freeman-Daily @JFreemanDaily We’ll shift to Topic T3 next … #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @coffeemommy: @JFreemanDaily Urgency + Patience. T2 (And then yes, understanding of basic science concepts) Knowing how and when to use your "outside voice" helps. Patients in the Research Advocate role are frequently under utilized b/c people forget we have life skills other than being patients. #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @steele_bob: T2: T2: Find it very helpful to share treatment breakthroughs & how every dollar helps. #lcsm |
 | Janet R Lathanjukj078 @lathanjukj078 #LCSM |
 | Alicia C. Staley @stales RT @JFreemanDaily: T2: T2: What skills do research advocates need to advance research? #lcsm |
| Alicia C. Staley @stales RT @JFreemanDaily: T1: T1: Research advocates are volunteers with a personal connection to cancer who are passionate about helping translate research into meaningful outcomes. They provide the perspective of their collective patient community. #LCSM |
| Alicia C. Staley @stales RT @JFreemanDaily: @coffeemommy Definitely different skills. A Patient Advocate has to get past telling THEIR story and into understanding needs of their entire disease community to be an effective Research Advocate or Policy Advocate. #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @jillfeldman4 Yes! The ability to summarize what you have read or heard, and then share... that is a big piece. #lcsm |
| Alicia C. Staley @stales RT @lgreco_ny: @JFreemanDaily @coffeemommy I would argue that the best patient advocates need to get past their own story as well. #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @JFreemanDaily @coffeemommy I would argue that the best patient advocates need to get past their own story as well. #lcsm |
| #LCSM Chat @lcsmchat RT @coffeemommy: @JFreemanDaily Urgency + Patience. T2 (And then yes, understanding of basic science concepts) Knowing how and when to use your "outside voice" helps. Patients in the Research Advocate role are frequently under utilized b/c people forget we have life skills other than being patients. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We’ll shift to Topic T3 next … #LCSM |
| Jill Feldman @jillfeldman4 T2 But it starts with passion. I was a horrible in science (and didn't like it). I still labor through it, but it's constant learning. #lcsm |
| Bob Steele @steele_bob Most people seem surprised re: gene mutation commonality with multiple cancer types. Has led to contributions. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @coffeemommy T2: +1 to having other "life skills." Some of the most effective Research Advocates have professional skills they can apply to their advocacy. #LCSM |
| KC Dill @kasedill RT @lgreco_ny: @JFreemanDaily @coffeemommy I would argue that the best patient advocates need to get past their own story as well. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @coffeemommy T2: @coffeemommy T2: +1 to having other "life skills." Some of the most effective Research Advocates have professional skills they can apply to their advocacy. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 But it starts with passion. I was a horrible in science (and didn't like it). I still labor through it, but it's constant learning. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @steele_bob: Most people seem surprised re: Most people seem surprised re: gene mutation commonality with multiple cancer types. Has led to contributions. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: What have research advocates done to support cancer research? #LCSM |
| #LCSM Chat @lcsmchat RT @steele_bob: Most people seem surprised re: Most people seem surprised re: gene mutation commonality with multiple cancer types. Has led to contributions. #lcsm |
| Laura Greco @lgreco_ny @coffeemommy @JFreemanDaily So true! I wish the greater medical community would see us general as someone other than a "patient" but someone who walks out of the exam room as a competent individual. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @coffeemommy T2: @coffeemommy T2: +1 to having other "life skills." Some of the most effective Research Advocates have professional skills they can apply to their advocacy. #LCSM |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @lgreco_ny @JFreemanDaily So much this. And it happens at different points for different people. If you're still starting every input with "when I was diagnosed," you may not be ready for advocacy just yet. #lcsm |
 | Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @lgreco_ny: @JFreemanDaily @KAdvocate_LCAM IMO, I think policy decisions are patient advocacy. I think there always is a need to be literate in research. It informs everything. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: T3: What have research advocates done to support cancer research? #LCSM |
| Bob Steele @steele_bob RT @jillfeldman4: T2 But it starts with passion. I was a horrible in science (and didn't like it). I still labor through it, but it's constant learning. #lcsm |
 | Dr Briony Scott @BrionyScott RT @JFreemanDaily: @coffeemommy Definitely different skills. A Patient Advocate has to get past telling THEIR story and into understanding needs of their entire disease community to be an effective Research Advocate or Policy Advocate. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: What have research advocates done to support cancer research? #LCSM |
| Dave Bjork @bjork5 I agree. I’m comfortable interacting with scientists and it’s not about me or my personal story. #LCSM |
| #LCSM Chat @lcsmchat RT @coffeemommy: @lgreco_ny @JFreemanDaily So much this. And it happens at different points for different people. If you're still starting every input with "when I was diagnosed," you may not be ready for advocacy just yet. #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @coffeemommy @JFreemanDaily So true! I wish the greater medical community would see us general as someone other than a "patient" but someone who walks out of the exam room as a competent individual. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lgreco_ny: @coffeemommy @JFreemanDaily So true! I wish the greater medical community would see us general as someone other than a "patient" but someone who walks out of the exam room as a competent individual. #lcsm |
| #LCSM Chat @lcsmchat RT @bjork5: I agree. I’m comfortable interacting with scientists and it’s not about me or my personal story. #LCSM |
| Bob Steele @steele_bob RT @bjork5: I agree. I’m comfortable interacting with scientists and it’s not about me or my personal story. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3: Research advocates support research by enhancing trial/study design. They review protocols, serve on study sections and conduct or participate in focus groups providing input into specific trial designs. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3: Research advocates serve on Institutional Review Boards (IRB) at academic medical centers and their local hospitals. All research conducted at an institution that is federally funded must have IRB approval. #LCSM |
| Jill Feldman @jillfeldman4 T2 Most important is to be able to collaborate, challenge respectfully, back down when necessary & be confident when providing perspective. Have to see big picture, beyond your story, and step outside your comfort zone. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: Research advocates review proposals for research projects and help decide who gets funded. One such program is CDMRP (Congressionally Directed Medical Research Programs). #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: T3: Research advocates serve on Institutional Review Boards (IRB) at academic medical centers and their local hospitals. All research conducted at an institution that is federally funded must have IRB approval. #LCSM |
| Kristin Ito @KAdvocate_LCAM RT @jillfeldman4: T2 Most important is to be able to collaborate, challenge respectfully, back down when necessary & be confident when providing perspective. Have to see big picture, beyond your story, and step outside your comfort zone. #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @bjork5: I agree. I’m comfortable interacting with scientists and it’s not about me or my personal story. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: T3: Research advocates support research by enhancing trial/study design. They review protocols, serve on study sections and conduct or participate in focus groups providing input into specific trial designs. #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @lgreco_ny: @coffeemommy @JFreemanDaily So true! I wish the greater medical community would see us general as someone other than a "patient" but someone who walks out of the exam room as a competent individual. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: T3: Research advocates review proposals for research projects and help decide who gets funded. One such program is CDMRP (Congressionally Directed Medical Research Programs). #LCSM |
| Laura Greco @lgreco_ny RT @jillfeldman4: T2 Most important is to be able to collaborate, challenge respectfully, back down when necessary & be confident when providing perspective. Have to see big picture, beyond your story, and step outside your comfort zone. #lcsm |
| Laura Greco @lgreco_ny RT @JFreemanDaily: T3: T3: Research advocates review proposals for research projects and help decide who gets funded. One such program is CDMRP (Congressionally Directed Medical Research Programs). #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: T3: T3: What have research advocates done to support cancer research? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: Research advocates support research by enhancing trial/study design. They review protocols, serve on study sections and conduct or participate in focus groups providing input into specific trial designs. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: Research advocates serve on Institutional Review Boards (IRB) at academic medical centers and their local hospitals. All research conducted at an institution that is federally funded must have IRB approval. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 Most important is to be able to collaborate, challenge respectfully, back down when necessary & be confident when providing perspective. Have to see big picture, beyond your story, and step outside your comfort zone. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: Research advocates review proposals for research projects and help decide who gets funded. One such program is CDMRP (Congressionally Directed Medical Research Programs). #LCSM |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @KAdvocate_LCAM @JFreemanDaily Love this Kristin - wholeheartedly agree! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: Research advocates participate in formal programs sponsored by the federal government with agencies such as @theNCI, @US_FDA, @theNASEM. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: T3: Research advocates participate in formal programs sponsored by the federal government with agencies such as @theNCI, @US_FDA, @theNASEM. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: Research advocates participate in formal programs sponsored by the federal government with agencies such as @theNCI, @US_FDA, @theNASEM. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3: For instance, I'm serving as a patient representative on the committee that's developing the NCI Cancer Moonshot Biobank. I had to learn a lot about biobanking, tissue donation, and biomarker testing, as well as regulations that govern them. #LCSM |
| Jill Feldman @jillfeldman4 T3 In various capacities a research advocates humanize the research. Our perspective and urgency can & should drive the critical questions that matter to patient, that will have the most impact #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jillfeldman4: T3 In various capacities a research advocates humanize the research. Our perspective and urgency can & should drive the critical questions that matter to patient, that will have the most impact #LCSM |
 | Comapenpatnl @comapenpatnl RT @DrMisialek: Driver Mutations in Lung Cancer. Did you know pathologists search for these? #LCSM https://t.co/tYVsk5PZuu |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: T3: For instance, I'm serving as a patient representative on the committee that's developing the NCI Cancer Moonshot Biobank. I had to learn a lot about biobanking, tissue donation, and biomarker testing, as well as regulations that govern them. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: For instance, I'm serving as a patient representative on the committee that's developing the NCI Cancer Moonshot Biobank. I had to learn a lot about biobanking, tissue donation, and biomarker testing, as well as regulations that govern them. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 In various capacities a research advocates humanize the research. Our perspective and urgency can & should drive the critical questions that matter to patient, that will have the most impact #LCSM |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @jillfeldman4 Agree! Ideally a research advocate can bring the voice of the community into research in an accessible way and then disseminate the results of the research back to the community in an accessible way. Takes practice & patience. T2. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @coffeemommy: @jillfeldman4 Agree! Ideally a research advocate can bring the voice of the community into research in an accessible way and then disseminate the results of the research back to the community in an accessible way. Takes practice & patience. T2. #lcsm |
 | Melissa P. Upton, M.D. (she/her/hers) @MelissaUpton7 RT @TimAllenMDJD: Word #lcsm |
| Christine Qiong Wu @CQiongWu @JFreemanDaily So I'm a research advocacte. #LCSM |
| Janet Freeman-Daily @JFreemanDaily A Research Advocate can give feedback on design and content of a research project's website that will make it more user friendly and informative. #LCSM |
| Kristin Ito @KAdvocate_LCAM T3: research advocates can help with program track design of scientific meetings! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KAdvocate_LCAM: T3: T3: research advocates can help with program track design of scientific meetings! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: A Research Advocate can give feedback on design and content of a research project's website that will make it more user friendly and informative. #LCSM |
| Laura Greco @lgreco_ny T3: Yes! In the end, all research areas should be driven by patient needs and priorities. #LCHCSummit19 |
| Dave Bjork @bjork5 T3: yes! This is super important! Research advocates really do get to have a voice in what projects get funded CDMRP #LCSM |
| Janet Freeman-Daily @JFreemanDaily @wi_qiong Yes, the work you do translating the ROS1 science from English to Chinese, and explaining the meaning of research papers, is research advocacy! #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @bjork5: T3: T3: yes! This is super important! Research advocates really do get to have a voice in what projects get funded CDMRP #LCSM |
 | Santhosh Ambika @RenoHemonc RT @abribriesco43: Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSCLC -#ROS1 testing infrequent w/ very favorable results #LCSM #StateOfScience @OncLiveSOSS https://t.co/kMemMjAf6q |
| Kristin Ito @KAdvocate_LCAM @jillfeldman4 YES! #lcsm |
| Bob Steele @steele_bob Research funding is my/our primary focus, but also support patient access (gas cards, rides) & public awareness & lobbying #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy THIS! An amazing research advocate explaining what it takes to be an amazing research advocate! Nicely stated @jillfeldman4 #lcsm cc: #bcsm #bccww #gyncsm #btsm #research #SurvOnc #medtwitter #OncoAlert |
| Janet Freeman-Daily @JFreemanDaily @ProjectBreath Good to see Australia joining the chat, Lillian! #LCSM |
 | Stephen V Liu, MD @StephenVLiu #LCSM T3: at the ASCO/VAIL clinical trials workshop, patient advocates play a huge role in teaching trainees about justice (particularly with regard to inclusion/exclusion criteria), proper consenting, risk:benefit, and so much more. |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh #lcsm Kim just joined |
| #LCSM Chat @lcsmchat RT @coffeemommy: @jillfeldman4 Agree! Ideally a research advocate can bring the voice of the community into research in an accessible way and then disseminate the results of the research back to the community in an accessible way. Takes practice & patience. T2. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: A Research Advocate can give feedback on design and content of a research project's website that will make it more user friendly and informative. #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T3: T3: research advocates can help with program track design of scientific meetings! #lcsm |
| #LCSM Chat @lcsmchat RT @bjork5: T3: T3: yes! This is super important! Research advocates really do get to have a voice in what projects get funded CDMRP #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @wi_qiong Yes, the work you do translating the ROS1 science from English to Chinese, and explaining the meaning of research papers, is research advocacy! #LCSM |
| Alejandro Bribriesco @abribriesco43 Dr James Stevenson from @ClevelandClinic on other actionable mutations in #NSCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/JPVeSAsY1P |
| Bob Steele @steele_bob RT @StephenVLiu: #LCSM T3: #LCSM T3: at the ASCO/VAIL clinical trials workshop, patient advocates play a huge role in teaching trainees about justice (particularly with regard to inclusion/exclusion criteria), proper consenting, risk:benefit, and so much more. |
| #LCSM Chat @lcsmchat RT @coffeemommy: THIS! An amazing research advocate explaining what it takes to be an amazing research advocate! Nicely stated @jillfeldman4 #lcsm cc: #bcsm #bccww #gyncsm #btsm #research #SurvOnc #medtwitter #OncoAlert |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @ProjectBreath Good to see Australia joining the chat, Lillian! #LCSM |
| #LCSM Chat @lcsmchat RT @StephenVLiu: #LCSM T3: #LCSM T3: at the ASCO/VAIL clinical trials workshop, patient advocates play a huge role in teaching trainees about justice (particularly with regard to inclusion/exclusion criteria), proper consenting, risk:benefit, and so much more. |
| Janet Freeman-Daily @JFreemanDaily RT @KAdvocate_LCAM: T3: T3: research advocates can help with program track design of scientific meetings! #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @StephenVLiu: #LCSM T3: #LCSM T3: at the ASCO/VAIL clinical trials workshop, patient advocates play a huge role in teaching trainees about justice (particularly with regard to inclusion/exclusion criteria), proper consenting, risk:benefit, and so much more. |
| Janet Freeman-Daily @JFreemanDaily RT @coffeemommy: THIS! An amazing research advocate explaining what it takes to be an amazing research advocate! Nicely stated @jillfeldman4 #lcsm cc: #bcsm #bccww #gyncsm #btsm #research #SurvOnc #medtwitter #OncoAlert |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T2 Most important is to be able to collaborate, challenge respectfully, back down when necessary & be confident when providing perspective. Have to see big picture, beyond your story, and step outside your comfort zone. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T4: What can research advocates do in their communities to support research? #LCSM |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @KAdvocate_LCAM: T3: T3: research advocates can help with program track design of scientific meetings! #lcsm |
| Jill Feldman @jillfeldman4 T3 We bring a face, humanize the disease and bring meaning to the research. Only the patient knows what is important to the patient. Patient input can truly change the trajectory of research. #lcsm |
| Bob Steele @steele_bob RT @abribriesco43: Dr James Stevenson from @ClevelandClinic on other actionable mutations in #NSCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/JPVeSAsY1P |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: What can research advocates do in their communities to support research? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T4: T4: What can research advocates do in their communities to support research? #LCSM |
| Dave Bjork @bjork5 T3: I was at #DPharm2019 and a lot was talked about patient advisory boards involved in #clinicaltrials design. Research advocates big help! #LCSM @kellyjmckee |
| Janet Freeman-Daily @JFreemanDaily T4: Here are some activities Cancer Research Advocates can do in their communities. Thanks to @RANAdvocate’s “Roadmap to Research Advocacy” for the list! #LCSM https://t.co/vWiPNJym2O |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T3 We bring a face, humanize the disease and bring meaning to the research. Only the patient knows what is important to the patient. Patient input can truly change the trajectory of research. #lcsm |
| Laura Greco @lgreco_ny RT @JFreemanDaily: T4: T4: Here are some activities Cancer Research Advocates can do in their communities. Thanks to @RANAdvocate’s “Roadmap to Research Advocacy” for the list! #LCSM https://t.co/vWiPNJym2O |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T4: T4: Here are some activities Cancer Research Advocates can do in their communities. Thanks to @RANAdvocate’s “Roadmap to Research Advocacy” for the list! #LCSM https://t.co/vWiPNJym2O |
| Bob Steele @steele_bob T4: Annual Greensboro LUNGe Forward 5K Walk, Run, Rally coming up Nov 2. Raised $198K last year. Will break $200K this year! #lcsm |
| Jill Feldman @jillfeldman4 T4 We need to work with both sides and figure out how to increase clinical trial inclusion. #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @coffeemommy: @KAdvocate_LCAM @JFreemanDaily Love this Kristin - wholeheartedly agree! #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @bjork5: T3: T3: yes! This is super important! Research advocates really do get to have a voice in what projects get funded CDMRP #LCSM |
| #LCSM Chat @lcsmchat Welcome Leslie! Remember to add the hashtag #lcsm if you want to chat. xo |
| Janet Freeman-Daily @JFreemanDaily RT @bjork5: T3: T3: I was at #DPharm2019 and a lot was talked about patient advisory boards involved in #clinicaltrials design. Research advocates big help! #LCSM @kellyjmckee |
| Bob Steele @steele_bob RT @jillfeldman4: T4 We need to work with both sides and figure out how to increase clinical trial inclusion. #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 We bring a face, humanize the disease and bring meaning to the research. Only the patient knows what is important to the patient. Patient input can truly change the trajectory of research. #lcsm |
| #LCSM Chat @lcsmchat RT @bjork5: T3: T3: I was at #DPharm2019 and a lot was talked about patient advisory boards involved in #clinicaltrials design. Research advocates big help! #LCSM @kellyjmckee |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: Here are some activities Cancer Research Advocates can do in their communities. Thanks to @RANAdvocate’s “Roadmap to Research Advocacy” for the list! #LCSM https://t.co/vWiPNJym2O |
| Dave Bjork @bjork5 Yes! #lcsm @J2Novack |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 We need to work with both sides and figure out how to increase clinical trial inclusion. #lcsm |
| Christine Qiong Wu @CQiongWu RT @JFreemanDaily: T4: T4: Here are some activities Cancer Research Advocates can do in their communities. Thanks to @RANAdvocate’s “Roadmap to Research Advocacy” for the list! #LCSM https://t.co/vWiPNJym2O |
| Janet Freeman-Daily @JFreemanDaily @bjork5 @kellyjmckee Some of the Pharma companies are really starting to make good use of patient advisory boards in #clinicaltrial design. Yay! #lcsm |
| Jill Feldman @jillfeldman4 T4 Research advocates must be willing to contact their local hospital/clinic and be proactive because they aren't #lcsm |
 | Bingle @TheBingle Need honest researchers. |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @bjork5 @kellyjmckee Some of the Pharma companies are really starting to make good use of patient advisory boards in #clinicaltrial design. Yay! #lcsm |
 | Hillary (Stires) Andrews, PhD @HillStirSci Great chat happening over on #lcsm right now! |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh @jillfeldman4 agree #lcsm |
| Laura Greco @lgreco_ny T4: I think it first involves raising one's hand. Sometimes though it also involves persistently making the case that patient involvement matters. We have to (unfortunately) prove our worth to the research community sometimes. #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T4 We need to work with both sides and figure out how to increase clinical trial inclusion. #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 Research advocates must be willing to contact their local hospital/clinic and be proactive because they aren't #lcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @JFreemanDaily: T1: T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info and research findings, brings pt perspective on research activities to sci advisory boards and committees. #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: T4: T4: I think it first involves raising one's hand. Sometimes though it also involves persistently making the case that patient involvement matters. We have to (unfortunately) prove our worth to the research community sometimes. #LCSM |
 | Bryce Olson @bryceolson Yes they do! The path to precision medicine starts with pathologists! Thank you!! #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @lgreco_ny: T4: T4: I think it first involves raising one's hand. Sometimes though it also involves persistently making the case that patient involvement matters. We have to (unfortunately) prove our worth to the research community sometimes. #LCSM |
| Bob Steele @steele_bob RT @bryceolson: Yes they do! The path to precision medicine starts with pathologists! Thank you!! #LCSM |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh @jillfeldman4 agree ask to be a part of the research committee, find out patient voice in clinical trails etc. #lcsm |
 | Gina @EAustin1969 Gina from California I’m lurking #lcsm |
| Laura Greco @lgreco_ny @JFreemanDaily @bjork5 @kellyjmckee Yes! So much better than the mostly pointless ad boards! #LCSM |
 | antony ruggeri @antonyruggeri RT @marklewismd: Germane to Dr. Adeji’s @SWOG plenary I discussion, and as taken from @BrJCancer, “crossing the Rubicon” in targeting kras mutation seems to hinge for the moment on G12C specifically https://t.co/iZ2zUAI8As #lcsm #crcsm #pancsm #swogonc https://t.co/aGWalrcNdd |
| Faces of Lung Cancer @LungCancerFaces If you’re just observing tonight’s chat, please send us a tweet with the hashtag #lcsm so we know you’re out there. You matter to us! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Can't argue with @DrMisialek! #lcsm |
| Dave Bjork @bjork5 @JFreemanDaily @kellyjmckee Yes! I loved hearing this! #lcsm 🙌 |
| Janet Freeman-Daily @JFreemanDaily Important to note that effective Research Advocacy can happen in your local clinic or research hospital. Volunteer for the IRB or their NCI SPORE (Specialized Program of Research Excellence). #LCSM |
| Hillary (Stires) Andrews, PhD @HillStirSci This this this! 👇🏼 #lcsm #bcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Important to note that effective Research Advocacy can happen in your local clinic or research hospital. Volunteer for the IRB or their NCI SPORE (Specialized Program of Research Excellence). #LCSM |
| #LCSM Chat @lcsmchat RT @Kamacintosh: @jillfeldman4 agree ask to be a part of the research committee, find out patient voice in clinical trails etc. #lcsm |
 | Karma Kreizenbeck @kreizenbeck RT @JFreemanDaily: T3: T3: Research advocates support research by enhancing trial/study design. They review protocols, serve on study sections and conduct or participate in focus groups providing input into specific trial designs. #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @JFreemanDaily @bjork5 @kellyjmckee Yes! So much better than the mostly pointless ad boards! #LCSM |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: If you’re just observing tonight’s chat, please send us a tweet with the hashtag #lcsm so we know you’re out there. You matter to us! |
| Janet Freeman-Daily @JFreemanDaily RT @LungCancerFaces: If you’re just observing tonight’s chat, please send us a tweet with the hashtag #lcsm so we know you’re out there. You matter to us! |
| Janet Freeman-Daily @JFreemanDaily RT @Kamacintosh: @jillfeldman4 agree ask to be a part of the research committee, find out patient voice in clinical trails etc. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Important to note that effective Research Advocacy can happen in your local clinic or research hospital. Volunteer for the IRB or their NCI SPORE (Specialized Program of Research Excellence). #LCSM |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Gotta run. Wonderful to spend screen time w/ #lcsm tweetchat & rub digital elbows with amazing advocates and clinicians! {hugs all around} And gratitude for all you do💗 @JFreemanDaily @lgreco_ny @jillfeldman4 @EAustin1969 @subatomicdoc @TimAllenMDJD @HillStirSci @KAdvocate_LCAM |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @coffeemommy: IMO there are three spheres of advocacy and much Venn-like overlap. Patient advocacy, Research advocacy & Policy advocacy. They are separate but impact each other. An individual advocate can focus on one area or all the areas - different skills, different communities. T1 #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @HillStirSci: Great chat happening over on #lcsm right now! |
| Janet Freeman-Daily @JFreemanDaily RT @coffeemommy: Gotta run. Wonderful to spend screen time w/ #lcsm tweetchat & rub digital elbows with amazing advocates and clinicians! {hugs all around} And gratitude for all you do💗 @JFreemanDaily @lgreco_ny @jillfeldman4 @EAustin1969 @subatomicdoc @TimAllenMDJD @HillStirSci @KAdvocate_LCAM |
| Janet Freeman-Daily @JFreemanDaily @coffeemommy @lgreco_ny @jillfeldman4 @EAustin1969 @subatomicdoc @TimAllenMDJD @HillStirSci @KAdvocate_LCAM Thanks for joining us! #LCSM |
| Laura Greco @lgreco_ny RT @JFreemanDaily: Important to note that effective Research Advocacy can happen in your local clinic or research hospital. Volunteer for the IRB or their NCI SPORE (Specialized Program of Research Excellence). #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @jillfeldman4: T3 In various capacities a research advocates humanize the research. Our perspective and urgency can & should drive the critical questions that matter to patient, that will have the most impact #LCSM |
 | Laronica Conway @louisianagirl91 Very good advice! Yesssss I’m here...late, but I made it! Missing my #LCSM peeps...where it all began!! 💕💕💕 |
| Janet Freeman-Daily @JFreemanDaily It's worth saying again: VERY important for Research Advocates to learn to state their case clearly. Sometimes you'll have to state it more than once to be heard. But also must listen to others and understand their viewpoints. #LCSM |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @jillfeldman4: T3 We bring a face, humanize the disease and bring meaning to the research. Only the patient knows what is important to the patient. Patient input can truly change the trajectory of research. #lcsm |
| Loves Mashed Potatoes @glostaMAssachu @JFreemanDaily Didn’t know this. Thank you! I will! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: It's worth saying again: It's worth saying again: VERY important for Research Advocates to learn to state their case clearly. Sometimes you'll have to state it more than once to be heard. But also must listen to others and understand their viewpoints. #LCSM |
| Laronica Conway @louisianagirl91 @LungCancerFaces 🙋🏾♀️ #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: It's worth saying again: It's worth saying again: VERY important for Research Advocates to learn to state their case clearly. Sometimes you'll have to state it more than once to be heard. But also must listen to others and understand their viewpoints. #LCSM |
 | OncLive SOSS @OncLiveSOSS RT @abribriesco43: Dr James Stevenson from @ClevelandClinic on other actionable mutations in #NSCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/JPVeSAsY1P |
| OncLive SOSS @OncLiveSOSS RT @abribriesco43: Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSCLC -#ROS1 testing infrequent w/ very favorable results #LCSM #StateOfScience @OncLiveSOSS https://t.co/kMemMjAf6q |
| Jill Feldman @jillfeldman4 T4 We are the liaisons with scientists and clinicians to disseminate info into our community but we also have to do what we can to link researchers with patients. We are there to help BOTH sides, with a focus on improving outcomes in our community #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: What training and resources are available for research advocates? #LCSM |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @JFreemanDaily: It's worth saying again: It's worth saying again: VERY important for Research Advocates to learn to state their case clearly. Sometimes you'll have to state it more than once to be heard. But also must listen to others and understand their viewpoints. #LCSM |
| Alejandro Bribriesco @abribriesco43 Dr Marc Shapiro from @ClevelandClinic presenting EGFR-Mutant #SCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/czCWLhBeGi |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T5: T5: What training and resources are available for research advocates? #LCSM |
| Jill Feldman @jillfeldman4 T5 STARS! IASLCs training program was fantastic! #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 We are the liaisons with scientists and clinicians to disseminate info into our community but we also have to do what we can to link researchers with patients. We are there to help BOTH sides, with a focus on improving outcomes in our community #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: What training and resources are available for research advocates? #LCSM |
| OncLive SOSS @OncLiveSOSS RT @abribriesco43: Dr Marc Shapiro from @ClevelandClinic presenting EGFR-Mutant #SCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/czCWLhBeGi |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 STARS! IASLCs training program was fantastic! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: Here’s a table of cancer research advocacy training programs available in the USA and Europe. Table with active links is available at https://t.co/NOFlIC5Zc2. Pls send additions to lcsmchat@gmail.com. #LCSM https://t.co/dZopU2SZXI |
| Bob Steele @steele_bob RT @jillfeldman4: T5 STARS! IASLCs training program was fantastic! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: Here’s a table of cancer research advocacy training programs available in the USA and Europe. Table with active links is available at https://t.co/NOFlIC5Zc2. Pls send additions to lcsmchat@gmail.com. #LCSM https://t.co/dZopU2SZXI |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T5 STARS! IASLCs training program was fantastic! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T5: T5: Here’s a table of cancer research advocacy training programs available in the USA and Europe. Table with active links is available at https://t.co/NOFlIC5Zc2. Pls send additions to lcsmchat@gmail.com. #LCSM https://t.co/dZopU2SZXI |
| Hillary (Stires) Andrews, PhD @HillStirSci @JFreemanDaily I’m building a program for research scientists and research advocates to work together to improve cancer research called @cancer_TAP. Still in the process of building out the website but if anyone is interesting in learning more feel free to DM me! #lcsm |
| Jill Feldman @jillfeldman4 T5 There is also Research Advocacy Network, which is a great resources for tutorials and webinars for self learning #lcsm |
| Laura Greco @lgreco_ny RT @JFreemanDaily: T5: T5: Here’s a table of cancer research advocacy training programs available in the USA and Europe. Table with active links is available at https://t.co/NOFlIC5Zc2. Pls send additions to lcsmchat@gmail.com. #LCSM https://t.co/dZopU2SZXI |
| Janet Freeman-Daily @JFreemanDaily @jillfeldman4 So glad it was meaningful and useful to you, Jill. Especially given your years of advocacy experience. #LCSM |
| Laura Greco @lgreco_ny RT @jillfeldman4: T5 STARS! IASLCs training program was fantastic! #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T4 We are the liaisons with scientists and clinicians to disseminate info into our community but we also have to do what we can to link researchers with patients. We are there to help BOTH sides, with a focus on improving outcomes in our community #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T5 There is also Research Advocacy Network, which is a great resources for tutorials and webinars for self learning #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 There is also Research Advocacy Network, which is a great resources for tutorials and webinars for self learning #lcsm |
| Bob Steele @steele_bob RT @jillfeldman4: T5 There is also Research Advocacy Network, which is a great resources for tutorials and webinars for self learning #lcsm |
| #LCSM Chat @lcsmchat RT @HillStirSci: @JFreemanDaily I’m building a program for research scientists and research advocates to work together to improve cancer research called @cancer_TAP. Still in the process of building out the website but if anyone is interesting in learning more feel free to DM me! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @HillStirSci @cancer_TAP I'd be interested in learning more, Hillary. #LCSM |
| Jill Feldman @jillfeldman4 T5 Lung cancer is a global problem but There isn't much outside of the US so we need to also support advocates from all countries. No need for them to reinvent the wheel #GlobalAdvocacy #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @HillStirSci: @JFreemanDaily I’m building a program for research scientists and research advocates to work together to improve cancer research called @cancer_TAP. Still in the process of building out the website but if anyone is interesting in learning more feel free to DM me! #lcsm |
 | Cancer Trainee Advocate Program @cancer_TAP RT @JFreemanDaily: T4: T4: Here are some activities Cancer Research Advocates can do in their communities. Thanks to @RANAdvocate’s “Roadmap to Research Advocacy” for the list! #LCSM https://t.co/vWiPNJym2O |
| KC Dill @kasedill RT @JFreemanDaily: T5: T5: Here’s a table of cancer research advocacy training programs available in the USA and Europe. Table with active links is available at https://t.co/NOFlIC5Zc2. Pls send additions to lcsmchat@gmail.com. #LCSM https://t.co/dZopU2SZXI |
| OncLive SOSS @OncLiveSOSS Dr. Khaled Hassan, of @ClevelandClinic, stopped by to discuss the use of EGFR TKIs in NSCLC. In our interview, he highlighted the FLAURA trial with osimertinib and the updated data presented at #ESMO19. Clips to come! #stateofscience #lcsm https://t.co/LitzJ7M2Ry |
| KC Dill @kasedill RT @HillStirSci: @JFreemanDaily I’m building a program for research scientists and research advocates to work together to improve cancer research called @cancer_TAP. Still in the process of building out the website but if anyone is interesting in learning more feel free to DM me! #lcsm |
| Laronica Conway @louisianagirl91 @wildwestannie @JFreemanDaily Yep! The local IRB must have a community member/lay person who can provide a different perspective on the content in consent forms. SO NECESSARY! #LCSM |
 | dr Jati Sp.PD @dokter_onkologi RT @abribriesco43: Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSCLC -#ROS1 testing infrequent w/ very favorable results #LCSM #StateOfScience @OncLiveSOSS https://t.co/kMemMjAf6q |
| Laura Greco @lgreco_ny Yes! We can learn from each other! #lcsm |
| Cancer Trainee Advocate Program @cancer_TAP RT @coffeemommy: IMO there are three spheres of advocacy and much Venn-like overlap. Patient advocacy, Research advocacy & Policy advocacy. They are separate but impact each other. An individual advocate can focus on one area or all the areas - different skills, different communities. T1 #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @louisianagirl91: @wildwestannie @JFreemanDaily Yep! The local IRB must have a community member/lay person who can provide a different perspective on the content in consent forms. SO NECESSARY! #LCSM |
| Janet Freeman-Daily @JFreemanDaily We were a small but mighty group tonight--actually, was nice to to have time to actually CONVERSE during #LCSM Chat! We’re in our final minutes - closing thoughts? |
| Cancer Trainee Advocate Program @cancer_TAP RT @KAdvocate_LCAM: @JFreemanDaily T2: @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with yourself while trying to learn about such a HUGE topic and stay determined by asking questions and challenging the norm. #lcsm Also, stay curious :) |
 | Kristi Rosa @kristi_rosa3 RT @abribriesco43: Dr James Stevenson from @ClevelandClinic on other actionable mutations in #NSCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/JPVeSAsY1P |
 | Lorraine Johnson, JD/MBA @lymepolicywonk This is what https://t.co/EhLqiyN5GK does--Patient advocacy, research advocacy, and policy advocacy. #lymedisease @Lymenews |
| Kristi Rosa @kristi_rosa3 RT @abribriesco43: Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSCLC -#ROS1 testing infrequent w/ very favorable results #LCSM #StateOfScience @OncLiveSOSS https://t.co/kMemMjAf6q |
| Kristi Rosa @kristi_rosa3 RT @abribriesco43: Dr Marc Shapiro from @ClevelandClinic presenting EGFR-Mutant #SCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/czCWLhBeGi |
| Kristi Rosa @kristi_rosa3 RT @OncLiveSOSS: Dr. Khaled Hassan, of @ClevelandClinic, stopped by to discuss the use of EGFR TKIs in NSCLC. In our interview, he highlighted the FLAURA trial with osimertinib and the updated data presented at #ESMO19. Clips to come! #stateofscience #lcsm https://t.co/LitzJ7M2Ry |
| Janet Freeman-Daily @JFreemanDaily RT @lgreco_ny: Yes! We can learn from each other! #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @louisianagirl91: @wildwestannie @JFreemanDaily Yep! The local IRB must have a community member/lay person who can provide a different perspective on the content in consent forms. SO NECESSARY! #LCSM |
| Cancer Trainee Advocate Program @cancer_TAP RT @coffeemommy: @JFreemanDaily Patient advocates provide support & resources to the patient community. Research advocates provide input, guidance and perspective to the research process. Spoiler Alert: an advocate CAN do both! T1 #lcsm #bcsm #gyncsm #hcldr |
| Laronica Conway @louisianagirl91 RT @HillStirSci: @JFreemanDaily I’m building a program for research scientists and research advocates to work together to improve cancer research called @cancer_TAP. Still in the process of building out the website but if anyone is interesting in learning more feel free to DM me! #lcsm |
| Cancer Trainee Advocate Program @cancer_TAP RT @JFreemanDaily: T1: T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info and research findings, brings pt perspective on research activities to sci advisory boards and committees. #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T5 Lung cancer is a global problem but There isn't much outside of the US so we need to also support advocates from all countries. No need for them to reinvent the wheel #GlobalAdvocacy #LCSM |
| Loves Mashed Potatoes @glostaMAssachu RT @louisianagirl91: @wildwestannie @JFreemanDaily Yep! The local IRB must have a community member/lay person who can provide a different perspective on the content in consent forms. SO NECESSARY! #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 Lung cancer is a global problem but There isn't much outside of the US so we need to also support advocates from all countries. No need for them to reinvent the wheel #GlobalAdvocacy #LCSM |
| Bob Steele @steele_bob RT @JFreemanDaily: We were a small but mighty group tonight--actually, was nice to to have time to actually CONVERSE during #LCSM Chat! We’re in our final minutes - closing thoughts? |
| Laronica Conway @louisianagirl91 RT @JFreemanDaily: T5: T5: What training and resources are available for research advocates? #LCSM |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @wildwestannie @JFreemanDaily Yep! The local IRB must have a community member/lay person who can provide a different perspective on the content in consent forms. SO NECESSARY! #LCSM |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @jillfeldman4: T5 STARS! IASLCs training program was fantastic! #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: Yes! We can learn from each other! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We were a small but mighty group tonight--actually, was nice to to have time to actually CONVERSE during #LCSM Chat! We’re in our final minutes - closing thoughts? |
| Janet Freeman-Daily @JFreemanDaily CT: A huge “Thank You” to Research Advocacy Network @RANAdvocate for the great material in their “Roadmap to Research Advocacy” (currently under revision)—the source/inspiration for many of my tweets tonight. #LCSM #LCSM |
 | Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins RT @JFreemanDaily: T1: T1: What is cancer research advocacy, and how is it different from patient advocacy? #LCSM |
| Jill Feldman @jillfeldman4 T5 Get to know more research advocates & learn from them. When that happens you find a whole new community to lean on, share knowledge, & advocate with! When things get tough, it's nice to have someone to motivate you & remind you of the impt work being done #LCSM |
| KC Dill @kasedill Excellent resources for patients to explore. I appreciate each and every one of the #lcsm community. Excellent chat thank you @JFreemanDaily for moderating.. #lcsm. |
| KC Dill @kasedill RT @jillfeldman4: T5 Get to know more research advocates & learn from them. When that happens you find a whole new community to lean on, share knowledge, & advocate with! When things get tough, it's nice to have someone to motivate you & remind you of the impt work being done #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T5 Get to know more research advocates & learn from them. When that happens you find a whole new community to lean on, share knowledge, & advocate with! When things get tough, it's nice to have someone to motivate you & remind you of the impt work being done #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Research is what drives better patient outcomes. It's vital that lung cancer research be funded fully. Fight stigma. #GoTeam #lcsm #NoStigma |
| Bob Steele @steele_bob Wishing everyone all the best. Look forward to seeing you at next Lung Cancer Social Media Twitter Chat Session! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: CT: CT: A huge “Thank You” to Research Advocacy Network @RANAdvocate for the great material in their “Roadmap to Research Advocacy” (currently under revision)—the source/inspiration for many of my tweets tonight. #LCSM #LCSM |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @JFreemanDaily: CT: CT: A huge “Thank You” to Research Advocacy Network @RANAdvocate for the great material in their “Roadmap to Research Advocacy” (currently under revision)—the source/inspiration for many of my tweets tonight. #LCSM #LCSM |
| Kristi Rosa @kristi_rosa3 Had a fantastic discussion with Dr. James P. Stevenson, of @ClevelandClinic, who walked me through some of the lesser known targetable mutations in NSCLC and the agents that have been developed to target them. #stateofscience #lcsm https://t.co/ShfQrBsCeN |
| Faces of Lung Cancer @LungCancerFaces Thank you @JFreemanDaily for moderating tonight. Special thanks for all your hard work helping lung cancer people become research advocates. #lcsm |
| Jill Feldman @jillfeldman4 Remember...research matters - and so does the role that patients play as research advocates! #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @TimAllenMDJD: Research is what drives better patient outcomes. It's vital that lung cancer research be funded fully. Fight stigma. #GoTeam #lcsm #NoStigma |
| Hillary (Stires) Andrews, PhD @HillStirSci @JFreemanDaily This is a great chat for all cancer subtypes! Thanks for leading the way, #lcsm! 😊 #bcsm #btsm #crcsm #pcsm #gyncsm #pancsm |
| Janet Freeman-Daily @JFreemanDaily RT @LungCancerFaces: Thank you @JFreemanDaily for moderating tonight. Special thanks for all your hard work helping lung cancer people become research advocates. #lcsm |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @jillfeldman4: Remember...research matters - and so does the role that patients play as research advocates! #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 Get to know more research advocates & learn from them. When that happens you find a whole new community to lean on, share knowledge, & advocate with! When things get tough, it's nice to have someone to motivate you & remind you of the impt work being done #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Yes, thank you for moderating, @JFreemanDaily. You inspire. It was a privilege to participate. #lcsm |
| Bob Steele @steele_bob RT @HillStirSci: @JFreemanDaily This is a great chat for all cancer subtypes! Thanks for leading the way, #lcsm! 😊 #bcsm #btsm #crcsm #pcsm #gyncsm #pancsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: CT: CT: A huge “Thank You” to Research Advocacy Network @RANAdvocate for the great material in their “Roadmap to Research Advocacy” (currently under revision)—the source/inspiration for many of my tweets tonight. #LCSM #LCSM |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @jillfeldman4: T5 Get to know more research advocates & learn from them. When that happens you find a whole new community to lean on, share knowledge, & advocate with! When things get tough, it's nice to have someone to motivate you & remind you of the impt work being done #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: Remember...research matters - and so does the role that patients play as research advocates! #LCSM |
| Laronica Conway @louisianagirl91 @JFreemanDaily @lcsmchat I know I missed most of the chat, but research advocates should never be afraid to pick up the phone or email their local cancer center to ask how they can play a role. Many hospital-based cmtes were formed by patients and/or their families. #lcsm |
| Bob Steele @steele_bob RT @TimAllenMDJD: Yes, thank you for moderating, @JFreemanDaily. You inspire. It was a privilege to participate. #lcsm |
| Dave Bjork @bjork5 @JFreemanDaily I always considered myself a research advocate because I’ve met so many cancer researchers and I “advocate” for the need for funding their work. They spend 75% of time writing grants. But it’s just a part of advocacy. Thanks for this important topic @JFreemanDaily #LCSM |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh Thank you Janet for moderating and all you do ( it took a bit of time to figure out the t-chat - but got it) #lcsm |
| Laronica Conway @louisianagirl91 This! Sooo right Dr. Tim! Miss you!! 🤗💕💕 #LCSM |
| Janet Freeman-Daily @JFreemanDaily Next #LCSM Chat will be Nov 7, 2019 (during #LCAM--Lung Cancer Awareness Month) on the topic "LC Awareness—Are We Making a Difference?" Hope you'll join us! |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @JFreemanDaily: Next #LCSM Chat will be Nov 7, 2019 (during #LCAM--Lung Cancer Awareness Month) on the topic "LC Awareness—Are We Making a Difference?" Hope you'll join us! |
 | Inspire @InspireIsHealth RT @DrMisialek: Driver Mutations in Lung Cancer. Did you know pathologists search for these? #LCSM https://t.co/tYVsk5PZuu |
| Janet Freeman-Daily @JFreemanDaily @Kamacintosh Thanks for sticking with it! Glad you participated. #LCSM |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @JFreemanDaily @lcsmchat I know I missed most of the chat, but research advocates should never be afraid to pick up the phone or email their local cancer center to ask how they can play a role. Many hospital-based cmtes were formed by patients and/or their families. #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @bjork5: @JFreemanDaily I always considered myself a research advocate because I’ve met so many cancer researchers and I “advocate” for the need for funding their work. They spend 75% of time writing grants. But it’s just a part of advocacy. Thanks for this important topic @JFreemanDaily #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @louisianagirl91: @JFreemanDaily @lcsmchat I know I missed most of the chat, but research advocates should never be afraid to pick up the phone or email their local cancer center to ask how they can play a role. Many hospital-based cmtes were formed by patients and/or their families. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Next #LCSM Chat will be Nov 7, 2019 (during #LCAM--Lung Cancer Awareness Month) on the topic "LC Awareness—Are We Making a Difference?" Hope you'll join us! |
| KC Dill @kasedill RT @JFreemanDaily: Next #LCSM Chat will be Nov 7, 2019 (during #LCAM--Lung Cancer Awareness Month) on the topic "LC Awareness—Are We Making a Difference?" Hope you'll join us! |
| Janet Freeman-Daily @JFreemanDaily RT @HillStirSci: @JFreemanDaily This is a great chat for all cancer subtypes! Thanks for leading the way, #lcsm! 😊 #bcsm #btsm #crcsm #pcsm #gyncsm #pancsm |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @TimAllenMDJD: Research is what drives better patient outcomes. It's vital that lung cancer research be funded fully. Fight stigma. #GoTeam #lcsm #NoStigma |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: Remember...research matters - and so does the role that patients play as research advocates! #LCSM |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: Next #LCSM Chat will be Nov 7, 2019 (during #LCAM--Lung Cancer Awareness Month) on the topic "LC Awareness—Are We Making a Difference?" Hope you'll join us! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Back atcha @louisianagirl91! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @louisianagirl91: @JFreemanDaily @lcsmchat I know I missed most of the chat, but research advocates should never be afraid to pick up the phone or email their local cancer center to ask how they can play a role. Many hospital-based cmtes were formed by patients and/or their families. #lcsm |
| Kim Moran-MacIntosh 🇨🇦 🍀 @Kamacintosh RT @jillfeldman4: T5 Get to know more research advocates & learn from them. When that happens you find a whole new community to lean on, share knowledge, & advocate with! When things get tough, it's nice to have someone to motivate you & remind you of the impt work being done #LCSM |
 | Research Advocacy @RANAdvocate Wow. Thank you! Love hearing that it was helpful. #LCSM |
| Inspire @InspireIsHealth RT @JFreemanDaily: T5: T5: Here’s a table of cancer research advocacy training programs available in the USA and Europe. Table with active links is available at https://t.co/NOFlIC5Zc2. Pls send additions to lcsmchat@gmail.com. #LCSM https://t.co/dZopU2SZXI |
| Janet Freeman-Daily @JFreemanDaily RT @RANAdvocate: Wow. Thank you! Love hearing that it was helpful. #LCSM |
| Christine Qiong Wu @CQiongWu @JFreemanDaily Today's topics are useful. Why do we want to distinguish research advocates and patient advocates? #LCSM |
 | OncLive.com @OncLive Durvalumab Combo Improves QoL, Reduces New Lesions in Small Cell Lung Cancer #SCLC #lcam #lcsm https://t.co/7zKcgCVsuQ |
| Laronica Conway @louisianagirl91 And...I know the “chat” is over, but I would be remiss if I didn’t mention that my volunteer role at the local cancer center + advocating with #LCSM PLAYED A MAJOR ROLE in my being hired in research at @UABSOM! Forever grateful! 💕💕💕 #LCSM |
#LCSM content from Twitter.