#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Janet Freeman-Daily @JFreemanDaily Welcome to #LCSM Chat! Tonight we will be discussing “The Path to Research Advocacy.” More info on this topic at https://t.co/eXGpOSSueY |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Path to Research Advocacy.” More info on this topic at https:/… |
| Janet Freeman-Daily @JFreemanDaily @wi_qiong Hi Christine. Just filter the tweets for #LCSM. When you post, be sure to include #LCSM in your tweet so others can see it in the chat. |
 | Adela @adelapoite RT @IASLC: Merck’s KEYTRUDA® (pembrolizumab) approved as monotherapy in #China for first-line treatment of certain patients with advanced #… |
| @LungCancerFaces RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Path to Research Advocacy.” More info on this topic at https:/… | |
 | Bob Steele @steele_bob Good evening folks! Bob here in Greensboro, NC. Looking forward to learning and sharing for this Twitter Chat Session. #lcsm |
| Bob Steele @steele_bob RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Path to Research Advocacy.” More info on this topic at https:/… |
| Janet Freeman-Daily @JFreemanDaily RT @bjork5: Great topic! Did I mention I love research? 🙌 #LCSM #innovation @JFreemanDaily @lcsmchat @KeithSpiro https://t.co/O3aYdyx8Rm |
 | Jennifer Potash @JenniferPotash RT @kristi_rosa3: CLEVELAND: the birthplace of Superman and the home of tonight’s State of the Science Summit on Lung Cancer! Very excited… |
| @LungCancerFaces Deana in sunny Los Angeles here! I’ll be tweeting tonight from the @lcsmchat account. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
 | Matthew Katz, MD 🇺🇸🟦 @subatomicdoc Good evening! Matt Katz, radiation oncologist in New England. Hi everyone #lcsm |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and… |
| Janet Freeman-Daily @JFreemanDaily @subatomicdoc Hey Matt! Nice to see you in #LCSM Chat again. |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
 | Kristin Ito @KAdvocate_LCAM Kristin Ito, here! Ready to join after a two hour commute home...😬 #lcsm |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Path to Research Advocacy.” More info on this topic at https:/… |
 | KC Dill @kasedill Hello from Houston, excited to learn about research advocacy #lcsm |
| Janet Freeman-Daily @JFreemanDaily @KAdvocate_LCAM OMG, that's awful! Glad you could join us. With all the football on tonight, it might be a quiet crowd. ;) #LCSM |
 | yetAnotherName @glostaMAssachu Hello! Betsy from chilly New England here #LCSM |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @JFreemanDaily Hi Janet! Nice to be here for #lcsm. How are you? |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here. Hailing from New Jersey tonight as I get ready for #CBCIV! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @kasedill Hi KC! #LCSM |
| Bob Steele @steele_bob It was 95 here today. 98 on Sunday... #lcsm |
| #LCSM Chat @lcsmchat @TimAllenMDJD Hey Tim! |
| Janet Freeman-Daily @JFreemanDaily If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @steele_bob Hi Bob. Yikes! That doesn't sound like autumn to me #lcsm |
| @LungCancerFaces RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… | |
| Kristin Ito @KAdvocate_LCAM RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… |
 | Laura Greco @lgreco_ny @JFreemanDaily Laura here #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them #lcsm |
| KC Dill @kasedill @lgreco_ny @JFreemanDaily Hi Laura #lcsm |
| Janet Freeman-Daily @JFreemanDaily @subatomicdoc I'm doing well, considering our Seattle summer converted to fall with a loud "thud" last week. #lcsm |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience |
 | Peggy Dennis @peggyddennis Peggy here from Denver. Listening in while driving to the mountains. Spotty reception at best but views are spectacular #lcsm |
| Janet Freeman-Daily @JFreemanDaily Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Howdy! #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @lgreco_ny @JFreemanDaily Hi Laura! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience |
| Janet Freeman-Daily @JFreemanDaily I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not displa… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #… |
| Janet Freeman-Daily @JFreemanDaily We’ll start with Topic T1 in a minute … #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We’ll start with Topic T1 in a minute … #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @TimAllenMDJD Hi Tim! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: What is cancer research advocacy, and how is it different from patient advocacy? #LCSM |
 | Deb 🌅 @debsmithbeach @JFreemanDaily Deb from NH here. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: What is cancer research advocacy, and how is it different from patient advocacy? #LCSM |
| KC Dill @kasedill @TimAllenMDJD Hello Dr. Allen.#Lcsm. |
| Janet Freeman-Daily @JFreemanDaily T1: Patient advocates provide support and resources to patients and caregivers, act as liaisons between patients and clinicians, raise awareness and educate others about their disease, and fundraise for research. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Sup, Matt! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: Research advocates are volunteers with a personal connection to cancer who are passionate about helping translate research into meaningful outcomes. They provide the perspective of their collective patient community. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: Patient advocates provide support and resources to patients and caregivers, act as liaisons between patients and cli… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Hope you are doing well, @kasedill! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: Research advocates are volunteers with a personal connection to cancer who are passionate about helping translate re… |
| Janet Freeman-Daily @JFreemanDaily T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info and research findings, brings pt perspective on research activities to sci advisory boards and committees. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info… |
| Kristin Ito @KAdvocate_LCAM @JFreemanDaily Would policy work be considered, just "advocacy?" I'm curious how others see this. #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @TimAllenMDJD Not much! Doing well and hoping for more pathology consult patients for @lijjoseph and the trial #lcsm |
| KC Dill @kasedill @TimAllenMDJD Feeling great, I scan on the 14th. #lcsm |
| Janet Freeman-Daily @JFreemanDaily [REDACTED USER] Stacey! Long time no tweet-connect. Good to see you here. Hope you'll share your awesome research advocate experiences. #LCSM |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @JFreemanDaily: T1: Research advocates are volunteers with a personal connection to cancer who are passionate about helping translate re… |
 | Terri Coutee @6state RT @JFreemanDaily: T1: Research advocates are volunteers with a personal connection to cancer who are passionate about helping translate re… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @JFreemanDaily: T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Patient advocacy includes addressing health disparities, providing for the underserved, and increasing healthcare value and patient safety. #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @KAdvocate_LCAM: @JFreemanDaily Would policy work be considered, just "advocacy?" I'm curious how others see this. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @KAdvocate_LCAM T1: Good question, Kristin. IMHO, if someone is responding to requests to contact policy makers and boosting the signal about policy, that's patient advocacy. If they're using their knowledge of research to drive policy change, that's research advocacy. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD My best to you, @kasedill. #lcsm |
| yetAnotherName @glostaMAssachu RT @TimAllenMDJD: Patient advocacy includes addressing health disparities, providing for the underserved, and increasing healthcare value a… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @JFreemanDaily: @KAdvocate_LCAM T1: Good question, Kristin. IMHO, if someone is responding to requests to contact policy makers and boos… |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @JFreemanDaily Would policy work be considered, just "advocacy?" I'm curious how others see this. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD 2d that @subatomicdoc #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Patient advocacy includes addressing health disparities, providing for the underserved, and increasing healthcare value a… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @KAdvocate_LCAM T1: Good question, Kristin. IMHO, if someone is responding to requests to contact policy makers and boos… |
| Laura Greco @lgreco_ny @JFreemanDaily @KAdvocate_LCAM IMO, I think policy decisions are patient advocacy. I think there always is a need to be literate in research. It informs everything. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info… |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @JFreemanDaily @KAdvocate_LCAM IMO, I think policy decisions are patient advocacy. I think there always is a need to be lit… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #lcsm is a great team! |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD T1: Agree--addressing health disparities and improving quality of care is a huge part of patient advocacy. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lgreco_ny: @JFreemanDaily @KAdvocate_LCAM IMO, I think policy decisions are patient advocacy. I think there always is a need to be lit… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @KAdvocate_LCAM T1: Good question, Kristin. IMHO, if someone is responding to requests to contact policy makers and boos… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TimAllenMDJD T1: Agree--addressing health disparities and improving quality of care is a huge part of patient advocacy.… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @TimAllenMDJD: Patient advocacy includes addressing health disparities, providing for the underserved, and increasing healthcare value a… |
| Janet Freeman-Daily @JFreemanDaily @lgreco_ny @KAdvocate_LCAM Some policy requires literacy in research--like changing FDA regulations to allow drug approvals based on Phase 2 trials instead of Phase 3. #LCSM |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @lgreco_ny: @JFreemanDaily @KAdvocate_LCAM IMO, I think policy decisions are patient advocacy. I think there always is a need to be lit… |
 | Lisa Briggs @livinglife82 Systematic tracking of PROs can help #patients & #clinicians to partner so that they stay on top of #symptoms, which in turn can improve #treatment effectiveness & the #PatientExperience #LCSM #QoL #NurseNavigator #PatientEmpowerment #WinWin #Burden #lungcancer #SupportiveCare |
| Janet Freeman-Daily @JFreemanDaily T2: What skills do research advocates need to advance research? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @lgreco_ny @KAdvocate_LCAM Some policy requires literacy in research--like changing FDA regulations to allow drug approv… |
 | Alejandro Bribriesco @abribriesco43 Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSCLC -#ROS1 testing infrequent w/ very favorable results #LCSM #StateOfScience @OncLiveSOSS https://t.co/kMemMjAf6q |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: What skills do research advocates need to advance research? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD And one mighty aim of research advocacy is to boost research funding. One hurdle is continuing stigma. #lcsm #NoStigma |
| Janet Freeman-Daily @JFreemanDaily RT @livinglife82: Systematic tracking of PROs can help #patients & #clinicians to partner so that they stay on top of #symptoms, which in t… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @JFreemanDaily: T2: What skills do research advocates need to advance research? #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: And one mighty aim of research advocacy is to boost research funding. One hurdle is continuing stigma. #lcsm #NoStigma h… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Word #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: What skills do research advocates need to advance research? #lcsm |
| Bob Steele @steele_bob T1: I always introduce myself as a lung cancer advocate & stress critical need for funding research. Also support other types. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: Research advocates need desire to make things better, ability to represent all patients (not just their own personal story), and good communications skills. #LCSM |
 | Jill Feldman @jillfeldman4 T2 Research advocates need to be educated on basic science, the process, be able to communicate clear messages, speak for the collective voice & be confident interacting with researchers and doctors #lcsm |
| #LCSM Chat @lcsmchat RT @steele_bob: T1: I always introduce myself as a lung cancer advocate & stress critical need for funding research. Also support other typ… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: Research advocates need desire to make things better, ability to represent all patients (not just their own personal… |
| Laura Greco @lgreco_ny RT @jillfeldman4: T2 Research advocates need to be educated on basic science, the process, be able to communicate clear messages, speak for… |
| Janet Freeman-Daily @JFreemanDaily T2: Research advocates need willingness to learn the basics of science, research, and treatments, and ability to work collaboratively with other. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 Research advocates need to be educated on basic science, the process, be able to communicate clear messages, speak for… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD The ability to tell your story. #lcsm |
 | Nathan A. Pennell MD, PhD, FASCO @n8pennell RT @abribriesco43: Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSC… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc @JFreemanDaily Needed skills for research advocates: 1. Good understanding to interpret research findings 2. Ability to clearly explain value of new research projects 3. Persistence #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: Research advocates need willingness to learn the basics of science, research, and treatments, and ability to work co… |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: The ability to tell your story. #lcsm https://t.co/suXdrBqVal |
| #LCSM Chat @lcsmchat RT @subatomicdoc: @JFreemanDaily Needed skills for research advocates: 1. Good understanding to interpret research findings 2. Ability to c… |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD Actually, I put the ability to tell your story in Patient Advocacy, not Research Advocacy. Research Advocates might share a tiny snip of their story to make a point, but it's not about THEM. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Absolutely! And then make sure policymakers here you! #lcsm |
| Kristin Ito @KAdvocate_LCAM @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with yourself while trying to learn about such a HUGE topic and stay determined by asking questions and challenging the norm. #lcsm Also, stay curious :) |
| Jill Feldman @jillfeldman4 T2 It is also important for research advocates have to have the ability to take the science & disseminate that info into their community in a way people can understand #lcsm |
| KC Dill @kasedill RT @jillfeldman4: T2 Research advocates need to be educated on basic science, the process, be able to communicate clear messages, speak for… |
| Janet Freeman-Daily @JFreemanDaily T2: Also helps for research advocates to be comfortable interacting with scientists, clinicians, and researchers, be able to briefly summarize the issues, and keep comments focused on the topic at hand. #LCSM |
| KC Dill @kasedill RT @JFreemanDaily: T2: Research advocates need willingness to learn the basics of science, research, and treatments, and ability to work co… |
| Laura Greco @lgreco_ny @subatomicdoc @JFreemanDaily t2: ability to see the "so what" in research and translate it to greater community. Sometimes though the "so what" is missing from research! #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @TimAllenMDJD: And one mighty aim of research advocacy is to boost research funding. One hurdle is continuing stigma. #lcsm #NoStigma h… |
 | John Suh @DrJohnSuh RT @abribriesco43: Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSC… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @lgreco_ny: @subatomicdoc @JFreemanDaily t2: ability to see the "so what" in research and translate it to greater community. Sometimes… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @JFreemanDaily: T2: Also helps for research advocates to be comfortable interacting with scientists, clinicians, and researchers, be abl… |
| KC Dill @kasedill RT @KAdvocate_LCAM: @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with y… |
| Bob Steele @steele_bob T2: Find it very helpful to share treatment breakthroughs & how every dollar helps. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TimAllenMDJD Actually, I put the ability to tell your story in Patient Advocacy, not Research Advocacy. Research Advoc… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @jillfeldman4: T2 It is also important for research advocates have to have the ability to take the science & disseminate that info into… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Perhaps. But I find stories always compelling. Moreso in a place where stigma must continue to be overcome. #lcsm |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @KAdvocate_LCAM: @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with y… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @TimAllenMDJD Actually, I put the ability to tell your story in Patient Advocacy, not Research Advocacy. Research Advoc… |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with y… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @subatomicdoc: @JFreemanDaily Needed skills for research advocates: 1. Good understanding to interpret research findings 2. Ability to c… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: Also helps for research advocates to be comfortable interacting with scientists, clinicians, and researchers, be abl… |
| Janet Freeman-Daily @JFreemanDaily [REDACTED USER] Definitely different skills. A Patient Advocate has to get past telling THEIR story and into understanding needs of their entire disease community to be an effective Research Advocate or Policy Advocate. #LCSM |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @subatomicdoc @JFreemanDaily t2: ability to see the "so what" in research and translate it to greater community. Sometimes… |
| #LCSM Chat @lcsmchat RT @steele_bob: T2: Find it very helpful to share treatment breakthroughs & how every dollar helps. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Perhaps. But I find stories always compelling. Moreso in a place where stigma must continue to be overcome. #lcsm https:/… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: [REDACTED USER] Definitely different skills. A Patient Advocate has to get past telling THEIR story and into understanding… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jillfeldman4: T2 It is also important for research advocates have to have the ability to take the science & disseminate that info into… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KAdvocate_LCAM: @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with y… |
| Kristin Ito @KAdvocate_LCAM @jillfeldman4 Yes! The ability to summarize what you have read or heard, and then share... that is a big piece. #lcsm |
 | Dave Bjork @bjork5 @JFreemanDaily Hey sorry I’m late! Dave here from Boston 🙌 #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: Research advocates need willingness to learn the basics of science, research, and treatments, and ability to work co… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jillfeldman4: T2 Research advocates need to be educated on basic science, the process, be able to communicate clear messages, speak for… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @steele_bob: T1: I always introduce myself as a lung cancer advocate & stress critical need for funding research. Also support other typ… |
| Laura Greco @lgreco_ny @JFreemanDaily [REDACTED USER] I would argue that the best patient advocates need to get past their own story as well. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: Also helps for research advocates to be comfortable interacting with scientists, clinicians, and researchers, be abl… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lgreco_ny: @subatomicdoc @JFreemanDaily t2: ability to see the "so what" in research and translate it to greater community. Sometimes… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @steele_bob: T2: Find it very helpful to share treatment breakthroughs & how every dollar helps. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: [REDACTED USER] Definitely different skills. A Patient Advocate has to get past telling THEIR story and into understanding… |
| Janet Freeman-Daily @JFreemanDaily We’ll shift to Topic T3 next … #LCSM |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @steele_bob: T2: Find it very helpful to share treatment breakthroughs & how every dollar helps. #lcsm |
 | Janet R Lathanjukj078 @lathanjukj078 #LCSM |
 | Alicia C. Staley @stales RT @JFreemanDaily: T2: What skills do research advocates need to advance research? #lcsm |
| Alicia C. Staley @stales RT @JFreemanDaily: T1: Research advocates are volunteers with a personal connection to cancer who are passionate about helping translate re… |
| Alicia C. Staley @stales RT @JFreemanDaily: [REDACTED USER] Definitely different skills. A Patient Advocate has to get past telling THEIR story and into understanding… |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @jillfeldman4 Yes! The ability to summarize what you have read or heard, and then share... that is a big piece. #lcsm |
| Alicia C. Staley @stales RT @lgreco_ny: @JFreemanDaily [REDACTED USER] I would argue that the best patient advocates need to get past their own story as well. #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @JFreemanDaily [REDACTED USER] I would argue that the best patient advocates need to get past their own story as well. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We’ll shift to Topic T3 next … #LCSM |
| Jill Feldman @jillfeldman4 T2 But it starts with passion. I was a horrible in science (and didn't like it). I still labor through it, but it's constant learning. #lcsm |
| Bob Steele @steele_bob Most people seem surprised re: gene mutation commonality with multiple cancer types. Has led to contributions. #lcsm |
| Janet Freeman-Daily @JFreemanDaily [REDACTED USER] T2: +1 to having other "life skills." Some of the most effective Research Advocates have professional skills they can apply to their advocacy. #LCSM |
| KC Dill @kasedill RT @lgreco_ny: @JFreemanDaily [REDACTED USER] I would argue that the best patient advocates need to get past their own story as well. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: [REDACTED USER] T2: +1 to having other "life skills." Some of the most effective Research Advocates have professional skill… |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 But it starts with passion. I was a horrible in science (and didn't like it). I still labor through it, but it's const… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @steele_bob: Most people seem surprised re: gene mutation commonality with multiple cancer types. Has led to contributions. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: What have research advocates done to support cancer research? #LCSM |
| #LCSM Chat @lcsmchat RT @steele_bob: Most people seem surprised re: gene mutation commonality with multiple cancer types. Has led to contributions. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: [REDACTED USER] T2: +1 to having other "life skills." Some of the most effective Research Advocates have professional skill… |
| Laura Greco @lgreco_ny [REDACTED USER] @JFreemanDaily So true! I wish the greater medical community would see us general as someone other than a "patient" but someone who walks out of the exam room as a competent individual. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: What have research advocates done to support cancer research? #LCSM |
| Bob Steele @steele_bob RT @jillfeldman4: T2 But it starts with passion. I was a horrible in science (and didn't like it). I still labor through it, but it's const… |
 | Dr Briony Scott @BrionyScott RT @JFreemanDaily: [REDACTED USER] Definitely different skills. A Patient Advocate has to get past telling THEIR story and into understanding… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: What have research advocates done to support cancer research? #LCSM |
| Dave Bjork @bjork5 I agree. I’m comfortable interacting with scientists and it’s not about me or my personal story. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lgreco_ny: [REDACTED USER] @JFreemanDaily So true! I wish the greater medical community would see us general as someone other than a "pati… |
| #LCSM Chat @lcsmchat RT @lgreco_ny: [REDACTED USER] @JFreemanDaily So true! I wish the greater medical community would see us general as someone other than a "pati… |
| #LCSM Chat @lcsmchat RT @bjork5: I agree. I’m comfortable interacting with scientists and it’s not about me or my personal story. #LCSM https://t.co/ovMXPDdriN |
| Bob Steele @steele_bob RT @bjork5: I agree. I’m comfortable interacting with scientists and it’s not about me or my personal story. #LCSM https://t.co/ovMXPDdriN |
| Janet Freeman-Daily @JFreemanDaily T3: Research advocates support research by enhancing trial/study design. They review protocols, serve on study sections and conduct or participate in focus groups providing input into specific trial designs. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3: Research advocates serve on Institutional Review Boards (IRB) at academic medical centers and their local hospitals. All research conducted at an institution that is federally funded must have IRB approval. #LCSM |
| Jill Feldman @jillfeldman4 T2 Most important is to be able to collaborate, challenge respectfully, back down when necessary & be confident when providing perspective. Have to see big picture, beyond your story, and step outside your comfort zone. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: Research advocates review proposals for research projects and help decide who gets funded. One such program is CDMRP (Congressionally Directed Medical Research Programs). #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: Research advocates serve on Institutional Review Boards (IRB) at academic medical centers and their local hospitals.… |
| Kristin Ito @KAdvocate_LCAM RT @jillfeldman4: T2 Most important is to be able to collaborate, challenge respectfully, back down when necessary & be confident when prov… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @bjork5: I agree. I’m comfortable interacting with scientists and it’s not about me or my personal story. #LCSM https://t.co/ovMXPDdriN |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: Research advocates support research by enhancing trial/study design. They review protocols, serve on study sections… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @lgreco_ny: [REDACTED USER] @JFreemanDaily So true! I wish the greater medical community would see us general as someone other than a "pati… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: Research advocates review proposals for research projects and help decide who gets funded. One such program is CDMRP… |
| Laura Greco @lgreco_ny RT @jillfeldman4: T2 Most important is to be able to collaborate, challenge respectfully, back down when necessary & be confident when prov… |
| Laura Greco @lgreco_ny RT @JFreemanDaily: T3: Research advocates review proposals for research projects and help decide who gets funded. One such program is CDMRP… |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @JFreemanDaily: T3: What have research advocates done to support cancer research? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: Research advocates support research by enhancing trial/study design. They review protocols, serve on study sections… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: Research advocates serve on Institutional Review Boards (IRB) at academic medical centers and their local hospitals.… |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 Most important is to be able to collaborate, challenge respectfully, back down when necessary & be confident when prov… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: Research advocates review proposals for research projects and help decide who gets funded. One such program is CDMRP… |
| Janet Freeman-Daily @JFreemanDaily T3: Research advocates participate in formal programs sponsored by the federal government with agencies such as @theNCI, @US_FDA, @theNASEM. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: Research advocates participate in formal programs sponsored by the federal government with agencies such as @theNCI,… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: Research advocates participate in formal programs sponsored by the federal government with agencies such as @theNCI,… |
| Janet Freeman-Daily @JFreemanDaily T3: For instance, I'm serving as a patient representative on the committee that's developing the NCI Cancer Moonshot Biobank. I had to learn a lot about biobanking, tissue donation, and biomarker testing, as well as regulations that govern them. #LCSM |
| Jill Feldman @jillfeldman4 T3 In various capacities a research advocates humanize the research. Our perspective and urgency can & should drive the critical questions that matter to patient, that will have the most impact #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jillfeldman4: T3 In various capacities a research advocates humanize the research. Our perspective and urgency can & should drive the c… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: For instance, I'm serving as a patient representative on the committee that's developing the NCI Cancer Moonshot Bi… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: For instance, I'm serving as a patient representative on the committee that's developing the NCI Cancer Moonshot Bi… |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 In various capacities a research advocates humanize the research. Our perspective and urgency can & should drive the c… |
 | Melissa P. Upton, M.D. (she/her/hers) @MelissaUpton7 RT @TimAllenMDJD: Word #lcsm https://t.co/liTfIgBxqq |
| Janet Freeman-Daily @JFreemanDaily A Research Advocate can give feedback on design and content of a research project's website that will make it more user friendly and informative. #LCSM |
| Kristin Ito @KAdvocate_LCAM T3: research advocates can help with program track design of scientific meetings! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KAdvocate_LCAM: T3: research advocates can help with program track design of scientific meetings! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: A Research Advocate can give feedback on design and content of a research project's website that will make it more user… |
| Laura Greco @lgreco_ny T3: Yes! In the end, all research areas should be driven by patient needs and priorities. #LCHCSummit19 |
| Dave Bjork @bjork5 T3: yes! This is super important! Research advocates really do get to have a voice in what projects get funded CDMRP #LCSM |
| Janet Freeman-Daily @JFreemanDaily @wi_qiong Yes, the work you do translating the ROS1 science from English to Chinese, and explaining the meaning of research papers, is research advocacy! #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @bjork5: T3: yes! This is super important! Research advocates really do get to have a voice in what projects get funded CDMRP #LCSM http… |
| Kristin Ito @KAdvocate_LCAM @jillfeldman4 YES! #lcsm |
| Bob Steele @steele_bob Research funding is my/our primary focus, but also support patient access (gas cards, rides) & public awareness & lobbying #lcsm |
| Janet Freeman-Daily @JFreemanDaily [REDACTED USER] Good to see Australia joining the chat, Lillian! #LCSM |
 | Stephen V Liu, MD @StephenVLiu #LCSM T3: at the ASCO/VAIL clinical trials workshop, patient advocates play a huge role in teaching trainees about justice (particularly with regard to inclusion/exclusion criteria), proper consenting, risk:benefit, and so much more. |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: A Research Advocate can give feedback on design and content of a research project's website that will make it more user… |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T3: research advocates can help with program track design of scientific meetings! #lcsm |
| #LCSM Chat @lcsmchat RT @bjork5: T3: yes! This is super important! Research advocates really do get to have a voice in what projects get funded CDMRP #LCSM http… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @wi_qiong Yes, the work you do translating the ROS1 science from English to Chinese, and explaining the meaning of resea… |
| Alejandro Bribriesco @abribriesco43 Dr James Stevenson from @ClevelandClinic on other actionable mutations in #NSCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/JPVeSAsY1P |
| Bob Steele @steele_bob RT @StephenVLiu: #LCSM T3: at the ASCO/VAIL clinical trials workshop, patient advocates play a huge role in teaching trainees about justice… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: [REDACTED USER] Good to see Australia joining the chat, Lillian! #LCSM |
| #LCSM Chat @lcsmchat RT @StephenVLiu: #LCSM T3: at the ASCO/VAIL clinical trials workshop, patient advocates play a huge role in teaching trainees about justice… |
| Janet Freeman-Daily @JFreemanDaily RT @KAdvocate_LCAM: T3: research advocates can help with program track design of scientific meetings! #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @StephenVLiu: #LCSM T3: at the ASCO/VAIL clinical trials workshop, patient advocates play a huge role in teaching trainees about justice… |
| Janet Freeman-Daily @JFreemanDaily T4: What can research advocates do in their communities to support research? #LCSM |
| Jill Feldman @jillfeldman4 T3 We bring a face, humanize the disease and bring meaning to the research. Only the patient knows what is important to the patient. Patient input can truly change the trajectory of research. #lcsm |
| Bob Steele @steele_bob RT @abribriesco43: Dr James Stevenson from @ClevelandClinic on other actionable mutations in #NSCLC #LCSM #StateOfScience @OncLiveSOSS htt… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: What can research advocates do in their communities to support research? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T4: What can research advocates do in their communities to support research? #LCSM |
| Dave Bjork @bjork5 T3: I was at #DPharm2019 and a lot was talked about patient advisory boards involved in #clinicaltrials design. Research advocates big help! #LCSM @kellyjmckee |
| Janet Freeman-Daily @JFreemanDaily T4: Here are some activities Cancer Research Advocates can do in their communities. Thanks to @RANAdvocate’s “Roadmap to Research Advocacy” for the list! #LCSM https://t.co/vWiPNJym2O |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T3 We bring a face, humanize the disease and bring meaning to the research. Only the patient knows what is important to t… |
| Laura Greco @lgreco_ny RT @JFreemanDaily: T4: Here are some activities Cancer Research Advocates can do in their communities. Thanks to @RANAdvocate’s “Roadmap to… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T4: Here are some activities Cancer Research Advocates can do in their communities. Thanks to @RANAdvocate’s “Roadmap to… |
| Bob Steele @steele_bob T4: Annual Greensboro LUNGe Forward 5K Walk, Run, Rally coming up Nov 2. Raised $198K last year. Will break $200K this year! #lcsm |
| Jill Feldman @jillfeldman4 T4 We need to work with both sides and figure out how to increase clinical trial inclusion. #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @bjork5: T3: yes! This is super important! Research advocates really do get to have a voice in what projects get funded CDMRP #LCSM http… |
| #LCSM Chat @lcsmchat Welcome Leslie! Remember to add the hashtag #lcsm if you want to chat. xo |
| Janet Freeman-Daily @JFreemanDaily RT @bjork5: T3: I was at #DPharm2019 and a lot was talked about patient advisory boards involved in #clinicaltrials design. Research advoca… |
| Bob Steele @steele_bob RT @jillfeldman4: T4 We need to work with both sides and figure out how to increase clinical trial inclusion. #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 We bring a face, humanize the disease and bring meaning to the research. Only the patient knows what is important to t… |
| #LCSM Chat @lcsmchat RT @bjork5: T3: I was at #DPharm2019 and a lot was talked about patient advisory boards involved in #clinicaltrials design. Research advoca… |
| Dave Bjork @bjork5 Yes! #lcsm @J2Novack |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 We need to work with both sides and figure out how to increase clinical trial inclusion. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @bjork5 @kellyjmckee Some of the Pharma companies are really starting to make good use of patient advisory boards in #clinicaltrial design. Yay! #lcsm |
| Jill Feldman @jillfeldman4 T4 Research advocates must be willing to contact their local hospital/clinic and be proactive because they aren't #lcsm |
 | Bingle @TheBingle Need honest researchers. |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @bjork5 @kellyjmckee Some of the Pharma companies are really starting to make good use of patient advisory boards in #cl… |
 | Hillary Andrews, PhD @HillStirSci Great chat happening over on #lcsm right now! |
| Laura Greco @lgreco_ny T4: I think it first involves raising one's hand. Sometimes though it also involves persistently making the case that patient involvement matters. We have to (unfortunately) prove our worth to the research community sometimes. #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T4 We need to work with both sides and figure out how to increase clinical trial inclusion. #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 Research advocates must be willing to contact their local hospital/clinic and be proactive because they aren't #lcsm |
| #LCSM Chat @lcsmchat RT @lgreco_ny: T4: I think it first involves raising one's hand. Sometimes though it also involves persistently making the case that patie… |
 | Bryce Olson @bryceolson Yes they do! The path to precision medicine starts with pathologists! Thank you!! #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @lgreco_ny: T4: I think it first involves raising one's hand. Sometimes though it also involves persistently making the case that patie… |
| Bob Steele @steele_bob RT @bryceolson: Yes they do! The path to precision medicine starts with pathologists! Thank you!! #LCSM https://t.co/NdVhVdtfa5 |
 | Gina @EAustin1969 Gina from California I’m lurking #lcsm |
| Laura Greco @lgreco_ny @JFreemanDaily @bjork5 @kellyjmckee Yes! So much better than the mostly pointless ad boards! #LCSM |
 | Read Velvet @_ReadVelvet What day is it? It’s October 3rd. Which means you should check out day 3 of #blogtober the way Cady Heron checks out Aaron Samels. Fall bucket list is live on Read Velvet now! • What’s your favorite quote from… https://t.co/g0QGOH7mKh |
| @LungCancerFaces If you’re just observing tonight’s chat, please send us a tweet with the hashtag #lcsm so we know you’re out there. You matter to us! | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Can't argue with @DrMisialek! #lcsm |
| Dave Bjork @bjork5 @JFreemanDaily @kellyjmckee Yes! I loved hearing this! #lcsm 🙌 |
| Janet Freeman-Daily @JFreemanDaily Important to note that effective Research Advocacy can happen in your local clinic or research hospital. Volunteer for the IRB or their NCI SPORE (Specialized Program of Research Excellence). #LCSM |
| Hillary Andrews, PhD @HillStirSci This this this! 👇🏼 #lcsm #bcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Important to note that effective Research Advocacy can happen in your local clinic or research hospital. Volunteer for t… |
 | Karma Kreizenbeck @kreizenbeck RT @JFreemanDaily: T3: Research advocates support research by enhancing trial/study design. They review protocols, serve on study sections… |
| #LCSM Chat @lcsmchat RT @lgreco_ny: @JFreemanDaily @bjork5 @kellyjmckee Yes! So much better than the mostly pointless ad boards! #LCSM |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: If you’re just observing tonight’s chat, please send us a tweet with the hashtag #lcsm so we know you’re out there. Yo… |
| Janet Freeman-Daily @JFreemanDaily RT @LungCancerFaces: If you’re just observing tonight’s chat, please send us a tweet with the hashtag #lcsm so we know you’re out there. Yo… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Important to note that effective Research Advocacy can happen in your local clinic or research hospital. Volunteer for t… |
| Janet Freeman-Daily @JFreemanDaily RT @HillStirSci: Great chat happening over on #lcsm right now! https://t.co/4hN5OIT1iI |
| Janet Freeman-Daily @JFreemanDaily [REDACTED USER] @lgreco_ny @jillfeldman4 @EAustin1969 @subatomicdoc @TimAllenMDJD @HillStirSci @KAdvocate_LCAM Thanks for joining us! #LCSM |
| Matthew Katz, MD 🇺🇸🟦 @subatomicdoc RT @jillfeldman4: T3 In various capacities a research advocates humanize the research. Our perspective and urgency can & should drive the c… |
 | Laronica Conway @louisianagirl91 Very good advice! Yesssss I’m here...late, but I made it! Missing my #LCSM peeps...where it all began!! 💕💕💕 |
| Janet Freeman-Daily @JFreemanDaily It's worth saying again: VERY important for Research Advocates to learn to state their case clearly. Sometimes you'll have to state it more than once to be heard. But also must listen to others and understand their viewpoints. #LCSM |
| Hillary Andrews, PhD @HillStirSci RT @jillfeldman4: T3 We bring a face, humanize the disease and bring meaning to the research. Only the patient knows what is important to t… |
| yetAnotherName @glostaMAssachu @JFreemanDaily Didn’t know this. Thank you! I will! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: It's worth saying again: VERY important for Research Advocates to learn to state their case clearly. Sometimes you'll ha… |
| Laronica Conway @louisianagirl91 @LungCancerFaces 🙋🏾♀️ #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: It's worth saying again: VERY important for Research Advocates to learn to state their case clearly. Sometimes you'll ha… |
 | OncLive SOSS @OncLiveSOSS RT @abribriesco43: Dr James Stevenson from @ClevelandClinic on other actionable mutations in #NSCLC #LCSM #StateOfScience @OncLiveSOSS htt… |
| Jill Feldman @jillfeldman4 T4 We are the liaisons with scientists and clinicians to disseminate info into our community but we also have to do what we can to link researchers with patients. We are there to help BOTH sides, with a focus on improving outcomes in our community #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: What training and resources are available for research advocates? #LCSM |
| Alejandro Bribriesco @abribriesco43 Dr Marc Shapiro from @ClevelandClinic presenting EGFR-Mutant #SCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/czCWLhBeGi |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T5: What training and resources are available for research advocates? #LCSM |
| Jill Feldman @jillfeldman4 T5 STARS! IASLCs training program was fantastic! #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 We are the liaisons with scientists and clinicians to disseminate info into our community but we also have to do what… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: What training and resources are available for research advocates? #LCSM |
| OncLive SOSS @OncLiveSOSS RT @abribriesco43: Dr Marc Shapiro from @ClevelandClinic presenting EGFR-Mutant #SCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/czCW… |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 STARS! IASLCs training program was fantastic! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: Here’s a table of cancer research advocacy training programs available in the USA and Europe. Table with active links is available at https://t.co/NOFlIC5Zc2. Pls send additions to lcsmchat@gmail.com. #LCSM https://t.co/dZopU2SZXI |
| Bob Steele @steele_bob RT @jillfeldman4: T5 STARS! IASLCs training program was fantastic! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: Here’s a table of cancer research advocacy training programs available in the USA and Europe. Table with active link… |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T5 STARS! IASLCs training program was fantastic! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T5: Here’s a table of cancer research advocacy training programs available in the USA and Europe. Table with active link… |
| Jill Feldman @jillfeldman4 T5 There is also Research Advocacy Network, which is a great resources for tutorials and webinars for self learning #lcsm |
| Hillary Andrews, PhD @HillStirSci @JFreemanDaily I’m building a program for research scientists and research advocates to work together to improve cancer research called @cancer_TAP. Still in the process of building out the website but if anyone is interesting in learning more feel free to DM me! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @jillfeldman4 So glad it was meaningful and useful to you, Jill. Especially given your years of advocacy experience. #LCSM |
| Laura Greco @lgreco_ny RT @jillfeldman4: T5 STARS! IASLCs training program was fantastic! #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T4 We are the liaisons with scientists and clinicians to disseminate info into our community but we also have to do what… |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T5 There is also Research Advocacy Network, which is a great resources for tutorials and webinars for self learning #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 There is also Research Advocacy Network, which is a great resources for tutorials and webinars for self learning #lcsm |
| #LCSM Chat @lcsmchat RT @HillStirSci: @JFreemanDaily I’m building a program for research scientists and research advocates to work together to improve cancer re… |
| Janet Freeman-Daily @JFreemanDaily @HillStirSci @cancer_TAP I'd be interested in learning more, Hillary. #LCSM |
| Jill Feldman @jillfeldman4 T5 Lung cancer is a global problem but There isn't much outside of the US so we need to also support advocates from all countries. No need for them to reinvent the wheel #GlobalAdvocacy #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @HillStirSci: @JFreemanDaily I’m building a program for research scientists and research advocates to work together to improve cancer re… |
 | Cancer Trainee Advocate Program @cancer_TAP RT @JFreemanDaily: T4: Here are some activities Cancer Research Advocates can do in their communities. Thanks to @RANAdvocate’s “Roadmap to… |
| KC Dill @kasedill RT @JFreemanDaily: T5: Here’s a table of cancer research advocacy training programs available in the USA and Europe. Table with active link… |
| OncLive SOSS @OncLiveSOSS Dr. Khaled Hassan, of @ClevelandClinic, stopped by to discuss the use of EGFR TKIs in NSCLC. In our interview, he highlighted the FLAURA trial with osimertinib and the updated data presented at #ESMO19. Clips to come! #stateofscience #lcsm https://t.co/LitzJ7M2Ry |
| KC Dill @kasedill RT @HillStirSci: @JFreemanDaily I’m building a program for research scientists and research advocates to work together to improve cancer re… |
| Laronica Conway @louisianagirl91 @wildwestannie @JFreemanDaily Yep! The local IRB must have a community member/lay person who can provide a different perspective on the content in consent forms. SO NECESSARY! #LCSM |
| Laura Greco @lgreco_ny Yes! We can learn from each other! #lcsm |
| Janet Freeman-Daily @JFreemanDaily We were a small but mighty group tonight--actually, was nice to to have time to actually CONVERSE during #LCSM Chat! We’re in our final minutes - closing thoughts? |
| Cancer Trainee Advocate Program @cancer_TAP RT @KAdvocate_LCAM: @JFreemanDaily T2: Two skills of the top of my head are patience and determination. It's important to be patient with y… |
 | Kristi Rosa @kristi_rosa3 RT @abribriesco43: Dr James Stevenson from @ClevelandClinic on other actionable mutations in #NSCLC #LCSM #StateOfScience @OncLiveSOSS htt… |
| Kristi Rosa @kristi_rosa3 RT @abribriesco43: Dr Nate Pennell (@n8pennell) from @ClevelandClinic back to podium to discuss ALK, ROS 1 and actionable mutations in #NSC… |
| Kristi Rosa @kristi_rosa3 RT @abribriesco43: Dr Marc Shapiro from @ClevelandClinic presenting EGFR-Mutant #SCLC #LCSM #StateOfScience @OncLiveSOSS https://t.co/czCW… |
| Kristi Rosa @kristi_rosa3 RT @OncLiveSOSS: Dr. Khaled Hassan, of @ClevelandClinic, stopped by to discuss the use of EGFR TKIs in NSCLC. In our interview, he highligh… |
| Janet Freeman-Daily @JFreemanDaily RT @lgreco_ny: Yes! We can learn from each other! #lcsm https://t.co/E4S1VsvZTJ |
| Janet Freeman-Daily @JFreemanDaily RT @louisianagirl91: @wildwestannie @JFreemanDaily Yep! The local IRB must have a community member/lay person who can provide a different p… |
| Laronica Conway @louisianagirl91 RT @HillStirSci: @JFreemanDaily I’m building a program for research scientists and research advocates to work together to improve cancer re… |
| Cancer Trainee Advocate Program @cancer_TAP RT @JFreemanDaily: T1: @TheNCI says Research Advocate serves as link between pts and scientific researchers, helps pts understand sci info… |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T5 Lung cancer is a global problem but There isn't much outside of the US so we need to also support advocates from all c… |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 Lung cancer is a global problem but There isn't much outside of the US so we need to also support advocates from all c… |
| Bob Steele @steele_bob RT @JFreemanDaily: We were a small but mighty group tonight--actually, was nice to to have time to actually CONVERSE during #LCSM Chat! We… |
 | Dr Timos Papagatsias @_timos_ Gene&Cell Therapy >> Published in Instagram: If you haven't listened to @troubleman31 podcast, ExpediTIously, what are you even doing!… https://t.co/qxXpp2zu9m #LucidQuest #followthepatient #genetherapy #regenerativemedicine #celltherapy #biotech #cancer #immunotherapy https://t.co/5XyptA3E5y |
| Laronica Conway @louisianagirl91 RT @JFreemanDaily: T5: What training and resources are available for research advocates? #LCSM |
| Dr Timos Papagatsias @_timos_ Gene&Cell Therapy >> Published in Instagram: I love love love my staff!😍😍😍 They are so dedicated, efficient, kind, hardworking... And we so… https://t.co/6UOYuemZrc #LucidQuest #followthepatient #genetherapy #celltherapy #regenerativemedicine #immunotherapy #biotech #cancer https://t.co/8XISCesU3B |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @wildwestannie @JFreemanDaily Yep! The local IRB must have a community member/lay person who can provide a different p… |
| #LCSM Chat @lcsmchat RT @lgreco_ny: Yes! We can learn from each other! #lcsm https://t.co/E4S1VsvZTJ |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We were a small but mighty group tonight--actually, was nice to to have time to actually CONVERSE during #LCSM Chat! We… |
| Janet Freeman-Daily @JFreemanDaily CT: A huge “Thank You” to Research Advocacy Network @RANAdvocate for the great material in their “Roadmap to Research Advocacy” (currently under revision)—the source/inspiration for many of my tweets tonight. #LCSM #LCSM |
 | Social Pharma @_social_pharma_ RT @_timos_: Gene&Cell Therapy >> Published in Instagram: If you haven't listened to @troubleman31 podcast, ExpediTIously, what are you eve… |
 | LucidQuest @LQVentures RT @_timos_: Gene&Cell Therapy >> Published in Instagram: If you haven't listened to @troubleman31 podcast, ExpediTIously, what are you eve… |
| Social Pharma @_social_pharma_ RT @_timos_: Gene&Cell Therapy >> Published in Instagram: I love love love my staff!😍😍😍 They are so dedicated, efficient, kind, hardworking… |
| LucidQuest @LQVentures RT @_timos_: Gene&Cell Therapy >> Published in Instagram: I love love love my staff!😍😍😍 They are so dedicated, efficient, kind, hardworking… |
| Jill Feldman @jillfeldman4 T5 Get to know more research advocates & learn from them. When that happens you find a whole new community to lean on, share knowledge, & advocate with! When things get tough, it's nice to have someone to motivate you & remind you of the impt work being done #LCSM |
| KC Dill @kasedill Excellent resources for patients to explore. I appreciate each and every one of the #lcsm community. Excellent chat thank you @JFreemanDaily for moderating.. #lcsm. |
| KC Dill @kasedill RT @jillfeldman4: T5 Get to know more research advocates & learn from them. When that happens you find a whole new community to lean on, sh… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Research is what drives better patient outcomes. It's vital that lung cancer research be funded fully. Fight stigma. #GoTeam #lcsm #NoStigma |
| Bob Steele @steele_bob Wishing everyone all the best. Look forward to seeing you at next Lung Cancer Social Media Twitter Chat Session! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: CT: A huge “Thank You” to Research Advocacy Network @RANAdvocate for the great material in their “Roadmap to Research Ad… |
| Kristi Rosa @kristi_rosa3 Had a fantastic discussion with Dr. James P. Stevenson, of @ClevelandClinic, who walked me through some of the lesser known targetable mutations in NSCLC and the agents that have been developed to target them. #stateofscience #lcsm https://t.co/ShfQrBsCeN |
| @LungCancerFaces Thank you @JFreemanDaily for moderating tonight. Special thanks for all your hard work helping lung cancer people become research advocates. #lcsm | |
| Jill Feldman @jillfeldman4 Remember...research matters - and so does the role that patients play as research advocates! #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @TimAllenMDJD: Research is what drives better patient outcomes. It's vital that lung cancer research be funded fully. Fight stigma. #GoT… |
| Hillary Andrews, PhD @HillStirSci @JFreemanDaily This is a great chat for all cancer subtypes! Thanks for leading the way, #lcsm! 😊 #bcsm #btsm #crcsm #pcsm #gyncsm #pancsm |
| Janet Freeman-Daily @JFreemanDaily RT @LungCancerFaces: Thank you @JFreemanDaily for moderating tonight. Special thanks for all your hard work helping lung cancer people beco… |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 Get to know more research advocates & learn from them. When that happens you find a whole new community to lean on, sh… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Yes, thank you for moderating, @JFreemanDaily. You inspire. It was a privilege to participate. #lcsm |
| Bob Steele @steele_bob RT @HillStirSci: @JFreemanDaily This is a great chat for all cancer subtypes! Thanks for leading the way, #lcsm! 😊 #bcsm #btsm #crcsm #pcsm… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: CT: A huge “Thank You” to Research Advocacy Network @RANAdvocate for the great material in their “Roadmap to Research Ad… |
| Hillary Andrews, PhD @HillStirSci RT @jillfeldman4: T5 Get to know more research advocates & learn from them. When that happens you find a whole new community to lean on, sh… |
| #LCSM Chat @lcsmchat RT @jillfeldman4: Remember...research matters - and so does the role that patients play as research advocates! #LCSM |
| Laronica Conway @louisianagirl91 @JFreemanDaily @lcsmchat I know I missed most of the chat, but research advocates should never be afraid to pick up the phone or email their local cancer center to ask how they can play a role. Many hospital-based cmtes were formed by patients and/or their families. #lcsm |
| Bob Steele @steele_bob RT @TimAllenMDJD: Yes, thank you for moderating, @JFreemanDaily. You inspire. It was a privilege to participate. #lcsm https://t.co/QyrUgt3… |
| Dave Bjork @bjork5 @JFreemanDaily I always considered myself a research advocate because I’ve met so many cancer researchers and I “advocate” for the need for funding their work. They spend 75% of time writing grants. But it’s just a part of advocacy. Thanks for this important topic @JFreemanDaily #LCSM |
| Laronica Conway @louisianagirl91 This! Sooo right Dr. Tim! Miss you!! 🤗💕💕 #LCSM |
| Janet Freeman-Daily @JFreemanDaily Next #LCSM Chat will be Nov 7, 2019 (during #LCAM--Lung Cancer Awareness Month) on the topic "LC Awareness—Are We Making a Difference?" Hope you'll join us! |
| Janet Freeman-Daily @JFreemanDaily [REDACTED USER] Thanks for sticking with it! Glad you participated. #LCSM |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @JFreemanDaily @lcsmchat I know I missed most of the chat, but research advocates should never be afraid to pick up th… |
| Janet Freeman-Daily @JFreemanDaily RT @bjork5: @JFreemanDaily I always considered myself a research advocate because I’ve met so many cancer researchers and I “advocate” for… |
| KC Dill @kasedill RT @JFreemanDaily: Next #LCSM Chat will be Nov 7, 2019 (during #LCAM--Lung Cancer Awareness Month) on the topic "LC Awareness—Are We Making… |
| Janet Freeman-Daily @JFreemanDaily RT @HillStirSci: @JFreemanDaily This is a great chat for all cancer subtypes! Thanks for leading the way, #lcsm! 😊 #bcsm #btsm #crcsm #pcsm… |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: Remember...research matters - and so does the role that patients play as research advocates! #LCSM |
| @MatthewSchabath The latest issue of 'Science, Society, and Sports'! https://t.co/zs24lzgZ18 Thanks to @TrevorG_Scrum @Roxiepurgatory @ConnieAmidei #lcsm #science | |
| @LungCancerFaces RT @JFreemanDaily: Next #LCSM Chat will be Nov 7, 2019 (during #LCAM--Lung Cancer Awareness Month) on the topic "LC Awareness—Are We Making… | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Back atcha @louisianagirl91! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @louisianagirl91: @JFreemanDaily @lcsmchat I know I missed most of the chat, but research advocates should never be afraid to pick up th… |
 | Research Advocacy @RANAdvocate Wow. Thank you! Love hearing that it was helpful. #LCSM |
 | Travis Smith @sivarTravisRS Another of my biggest struggles especially when it comes to professional circumstances. . . . #thisisms #projectorange #mswarrior #msawareness #multiplesclerosis #chronicillness #chronicpain #msfatigue… https://t.co/wFKViHGr71 |
| Janet Freeman-Daily @JFreemanDaily RT @RANAdvocate: Wow. Thank you! Love hearing that it was helpful. #LCSM https://t.co/LiVVYsMwqQ |
 | OncLive.com @OncLive Durvalumab Combo Improves QoL, Reduces New Lesions in Small Cell Lung Cancer #SCLC #lcam #lcsm https://t.co/7zKcgCVsuQ |
| Laronica Conway @louisianagirl91 And...I know the “chat” is over, but I would be remiss if I didn’t mention that my volunteer role at the local cancer center + advocating with #LCSM PLAYED A MAJOR ROLE in my being hired in research at @UABSOM! Forever grateful! 💕💕💕 #LCSM |
#LCSM content from Twitter.