#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | NCI Cancer Stats @NCICancerStats It’s #LungCancer Awareness Month! Lung cancer is the number one leading cause of cancer death in the US: https://t.co/MnrkjfdC6A #LCSM |
 | john @JohnLPender @JFreemanDaily Neither does https://t.co/mOUqct6Csc #lcsm |
 | Geri Massa @GeriGerim13 Looking forward to tonight’s chat 😊 #lcsm |
 | National Cancer Institute @theNCI Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
 | Danielle Pardue @Actorielle RT @NCICancerStats: It’s #LungCancer Awareness Month! Lung cancer is the number one leading cause of cancer death in the US: It’s #LungCancer Awareness Month! Lung cancer is the number one leading cause of cancer death in the US: https://t.co/MnrkjfdC6A #LCSM |
 | Faces of Lung Cancer @LungCancerFaces @GeriGerim13 Hey, Geri. How are you? #lcsm |
 | Janet Freeman-Daily @JFreemanDaily Welcome to #LCSM Chat! Tonight’s topic: "Running on Empty—Advocacy and Burnout.” Background and questions are on the #LCSM Chat blog https://t.co/weOZy8OTHK |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight’s topic: Welcome to #LCSM Chat! Tonight’s topic: "Running on Empty—Advocacy and Burnout.” Background and questions are on the #LCSM Chat blog https://t.co/weOZy8OTHK |
| Danielle Pardue @Actorielle Hey, my friends! Danielle here, full-time CG and advocate. NC. Happy LCAM! Love! #lcsm |
| Janet Freeman-Daily @JFreemanDaily This is the first-ever #LCSM Chat in which we can tweet with 280 characters! No more need for cryptic medical abbreviations or multi-tweet sentences, right? |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight’s topic: Welcome to #LCSM Chat! Tonight’s topic: "Running on Empty—Advocacy and Burnout.” Background and questions are on the #LCSM Chat blog https://t.co/weOZy8OTHK |
 | colleen ziegler @ZieglerColleen #lcsm Hi Colleen from Rochester joining |
| Faces of Lung Cancer @LungCancerFaces @Actorielle Hey, you! How's married life treating you? #lcsm |
 | Bob Steele @steele_bob Hello folks! Bob here in Greensboro, NC. #lcsm |
 | Pub Health Monitor @monitor_PH RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
| Janet Freeman-Daily @JFreemanDaily Happy #LungCancerAwarenessMonth (#LCAM) to everyone! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @ZieglerColleen Hi, Colleen! Are you feeling any better? I sure hope so. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @drCarterHarris Welcome! Glad you're here. #lcsm |
 | Naomi @ChancesR3 Naomi here - glad to be able@to join the chat tonight after a long day w/hubby for clinical trial. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @steele_bob Hi Bob! We're going to fatten you up over the next couple of months. #lcsm |
| Geri Massa @GeriGerim13 Good evening y’all Geri here in Louisiana #LCSM |
 | These Are My Scars @TheseAreMyScars 20,000+ Canadians die annually from #LungCancer, new treatments bring hope. Sadly it can take over 1000+ days to fund some of them. This month support #LCAM and learn the facts. #HopeUnites #NoStigma #LCSM |
| Faces of Lung Cancer @LungCancerFaces @ChancesR3 Yay! I was just thinking about you. Wondering how it's going with the clinical trial. xo #lcsm |
| These Are My Scars @TheseAreMyScars RT @JFreemanDaily: This is the first-ever #LCSM Chat in which we can tweet with 280 characters! No more need for cryptic medical abbreviations or multi-tweet sentences, right? |
 | Miami Gives @MiamiGives RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
| Janet Freeman-Daily @JFreemanDaily We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
 | Jorge Luis Lopez Esq @lopezgovlaw RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
 | Karen Loss @cancertrek Hi all. I'm here, at least for a bit. Kind of hungry though. Haven't had supper yet. #lcsm |
| These Are My Scars @TheseAreMyScars It’s wonderful!! https://t.co/YRmvzksXJg |
| Faces of Lung Cancer @LungCancerFaces @Dollybrad Thanks for joining us this evening. #lcsm |
 | Frank Ingram, MD @Chucktowndoc Ingram here. Community pathologist in the Queen City (Charlotte, NC) #LCSM |
 | Dave Bjork @bjork5 Hi all! Dave here in Boston #lcsm #LCAM |
| These Are My Scars @TheseAreMyScars RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
| Geri Massa @GeriGerim13 @LungCancerFaces #lcsm glad to be here, how are you? |
| Faces of Lung Cancer @LungCancerFaces @cancertrek Hey, Karen! Congrats on your now 3x Cy Young Award winner. #lcsm |
 | Colorado Cancer Coalition @CoCancerFund 1 in 15 men & 1 in 17 women will be diagnosed with #lungcancer in their lifetime in Colorado.* (Up to age 85) https://t.co/XDRFJi1y1j |
| Janet Freeman-Daily @JFreemanDaily @cancertrek I haven't eaten either (if you don't count the quickly-shrinking tube of Ritz crackers next to me) #lcsm |
| Faces of Lung Cancer @LungCancerFaces @Chucktowndoc Welcome! Thanks for joining us. #lcsm |
 | SOTS @sparkyontheseas Checking in. Hello all!!! #lcsm |
 | Alicia C. Staley @stales Hi everyone! #lcsm |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc88h7Jg), science geek, stage IV #lungcancer patient/activist #lcsm |
| Faces of Lung Cancer @LungCancerFaces @bjork5 Hi, Dave! How are you? #lcsm |
| These Are My Scars @TheseAreMyScars Hello all, Anne Marie here from Toronto. It’s been a while, I’ve missed you all!! #LCSM |
| Janet Freeman-Daily @JFreemanDaily @stales Nice to see #BCSM join the chat! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @sparkyontheseas Hey, stranger! Hope you're doing OK. #lcsm |
| Dave Bjork @bjork5 @stales Hey there! #LCSM |
| Janet Freeman-Daily @JFreemanDaily If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb |
| Faces of Lung Cancer @LungCancerFaces @stales Hello #bcsm rock star!! #lcsm |
| Alicia C. Staley @stales @JFreemanDaily thanks, important topic tonight! #lcsm |
 | Susan Burke Mangano @susila55 RT @susila55: @RPHPresearch @ThatArcher @SeaBrinkley @WhetstineLab #Lungcancer knows no age. Anyone can get cancer. Help spread the word. #LungCancerAwarenessMonth #LCAM17 https://t.co/N94LTsHF1d |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Alicia C. Staley @stales @bjork5 Hey there! How are you? #lcsm |
| Faces of Lung Cancer @LungCancerFaces @TheseAreMyScars Hello! Good to see you tonight. #lcsm |
| Naomi @ChancesR3 @LungCancerFaces It’s interesting! 7 days of AZ6738 and then immunotherapy infusion. Then 20 days of nothing. Then cycle again. Immunotherapy for EGFR - fingers and toes crossed! #lcsm |
| Alicia C. Staley @stales @LungCancerFaces hi #LCSM rockstars!!! |
| Alicia C. Staley @stales RT @JFreemanDaily If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/n26HZ6ijK8 |
 | Sarah Jeffords @sarahkilgore23 #lcsm diagnosed at https://t.co/ENRVycDudR in Georgia |
| Geri Massa @GeriGerim13 #LCSM https://t.co/KiCHPne2FE |
| Faces of Lung Cancer @LungCancerFaces Deana Hendrickson in Los Angeles here. Important topic tonight. #lcsm |
 | Flemming Rasmussen @fgrazz Flemming dropping by... #lcsm |
| Dave Bjork @bjork5 @LungCancerFaces Hey Deana! It's all good. So great to meet you in DC #LCSM |
| Faces of Lung Cancer @LungCancerFaces @sarahkilgore23 Hey, Sarah! I'm so glad you're here with us tonight. #lcsm |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm |
 | lysa buonanno @lysabee #lcsm hi from Vegas |
| john @JohnLPender @sarahkilgore23 I'm in Georgia too. Diagnosed at 37. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @bjork5 It was great. Still can't get over how tall you are! #lcsm |
 | SunshineKK @SunshineKK68 #LCSM |
| Flemming Rasmussen @fgrazz @Dollybrad yay🇨🇦 #lcsm |
| Janet Freeman-Daily @JFreemanDaily I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #lcsm |
 | Kristy Rogers @LungLove4Mom #lcsm hi everyone :) |
| Faces of Lung Cancer @LungCancerFaces @fgrazz Hey! Reading that book tonight. Never had a chance during my whirlwind DC trip. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @lysabee Hi Lysa! #lcsm |
 | Mona Perl @Mperl RT @susila55: #433aday US lives lost 2 #LungCancer. Now, this is a #NationalEmergency! Not my son! Help me stop the epidemic! #LCSM #LCAM17 #MikeBurke #LungCancerAwareness https://t.co/FXOUE6c5WR |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here #lcsm https://t.co/vwJPnkQfLZ |
| Faces of Lung Cancer @LungCancerFaces @SunshineKK68 Welcome. Thanks for joining in. #lcsm |
| Dave Bjork @bjork5 @LungCancerFaces Haha my 3 boys are all 6'5" -3 inches taller me 😂 #LCSM |
| Alicia C. Staley @stales Alicia - co-founder of #BCSM - joining in for this important chat on the #LCSM channel :-) 3x cancer survivor (Hodgkins and BC) |
 | Kathleen Skambis @KathleenSkambis #lcsm Kathleen here in Florida. Sporadically. Nursing husband home after knee replacement surgery this morning. |
| Flemming Rasmussen @fgrazz @LungCancerFaces yup...life gets busy!....hope it takes you to a good place #lcsm |
| Faces of Lung Cancer @LungCancerFaces @TimAllenMDJD Now we can get this party started. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Glad to see familiar Twitter handles as well as new participants tonight! Did anyone attend #433aday Life and Breath Rally 11/2? #lcsm |
| Faces of Lung Cancer @LungCancerFaces @KathleenSkambis Knee replacement is a tough one. Best hopes that he heals quickly. #lcsm |
| These Are My Scars @TheseAreMyScars Looks like a big crowd, apparently were all@“feeling” it. #lcsm |
| Janet Freeman-Daily @JFreemanDaily We’ll start with Topic T1 in a minute … #lcsm |
| Karen Loss @cancertrek I was at #433aday rally. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @LungLove4Mom Hi Kristy! #lcsm |
| john @JohnLPender @JFreemanDaily Not that I could have gone, but I didn't know about it until 11/1. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @drdavidpalma Welcome. Thanks for joining us. #lcsm |
| colleen ziegler @ZieglerColleen #lcsm I was there |
| Janet Freeman-Daily @JFreemanDaily Note: for purposes of this chat, "cancer patient advocate" can be ANYONE who advocates for cancer patients (including docs) #lcsm |
| Faces of Lung Cancer @LungCancerFaces @JohnLPender @JFreemanDaily Don't worry. We're doing another one next year. Stay tuned. #lcsm |
| Bob Steele @steele_bob RT @stales: Alicia - co-founder of #BCSM - joining in for this important chat on the #LCSM channel :-) 3x cancer survivor (Hodgkins and BC) |
| Janet Freeman-Daily @JFreemanDaily T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
| Dave Bjork @bjork5 RT @LungCancerFaces: @JohnLPender @JFreemanDaily Don't worry. We're doing another one next year. Stay tuned. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @itsthebunk Hey Liza! Welcome! #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: Looks like a big crowd, apparently were all@“feeling” it. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Glad to see familiar Twitter handles as well as new participants tonight! Did anyone attend #433aday Life and Breath Rally 11/2? #lcsm |
| Faces of Lung Cancer @LungCancerFaces @itsthebunk Hi Liza! #lcsm |
| Alicia C. Staley @stales RT @JFreemanDaily: Note: Note: for purposes of this chat, "cancer patient advocate" can be ANYONE who advocates for cancer patients (including docs) #lcsm |
| Alicia C. Staley @stales RT @JFreemanDaily: T1: T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
 | Tessa Sheldon @tessa_perrin Tessa here. Helping with my mama, dx ext stage small cell a year ago. #lcsm |
 | Upstage Lung Cancer @UpstageLungCanc Good evening, friends! Always an honor to be here! #lcsm |
| Faces of Lung Cancer @LungCancerFaces I can't wait for the next #433aday Life and Breath Rally. What a great experience! #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T1: T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
| Faces of Lung Cancer @LungCancerFaces @tessa_perrin Hi Tessa! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @UpstageLungCanc Welcome! #lcsm |
| Karen Loss @cancertrek T1: My main focus is awareness and education. I do speaking engagements, write blog columns occasionally, and do 1 on 1 constantly. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at conferences #lcsm |
| Tessa Sheldon @tessa_perrin @LungCancerFaces Hey there! #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T1: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at conferences #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm |
| #LCSM Chat @lcsmchat RT @stales: RT @JFreemanDaily If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/n26HZ6ijK8 |
| Karen Loss @cancertrek Been doing patient advocacy for about 4 years of my 5 year lung cancer experience. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at conferences #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Naomi @ChancesR3 T1 - I advocate for my hubby since stage 4 dx 2012. Last 2 years more care needed but we try to learn all we can as 2 research & educate others that u just need lungs to get LC. #lcsm |
| Dave Bjork @bjork5 @JFreemanDaily T1: I raise money & awareness of the need for cancer research funding for researchers like @WhetstineLab #LCSM |
| Kathleen Skambis @KathleenSkambis #lcsm 18 yr bilateral lung ca survivor. Work with @lungforce and @LungAssociation and generally advocate for awareness and research $$ |
| Danielle Pardue @Actorielle @tessa_perrin hey my friend! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T1: T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: I guess I started "advocating" when I started writing my blog in April 2012. Got really active in 2013 w/#LCSM. #lcsm |
 | NCI Center for Cancer Research @NCIResearchCtr RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
| Kristy Rogers @LungLove4Mom #lcsm I helped start the #lunglovewalk 5k in Houston along with other awesome people and @LCAorg We just had our 4th walk on Nov. 5th :) |
 | さく @saku18a RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Note: Note: for purposes of this chat, "cancer patient advocate" can be ANYONE who advocates for cancer patients (including docs) #lcsm |
 | diseases_an @diseases_an RT @susila55: #433aday #NationalEmergency #Lungcancer knows no age. It is brutal. It is the #1 #cancer killer. Help spread the word. #Research #Diagnosis #LCAM17 #LCSM https://t.co/bKkGTYgWKR |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at conferences #lcsm |
| Bob Steele @steele_bob T1: My dad passed at 58 from LC. Wife & I became active advocates in 2007 w/ Lung Cancer Initiative of NC. #lcsm |
| Flemming Rasmussen @fgrazz Get involved in local community cancer support groups, attend proximate cancer conferences, active on SM,work on a new cancer theory #lcsm |
 | Anita Figueras @scifiknitter Anita here - late due to newbie chemo brain, and dealing with burnout and clinical trial PTSD. Everything is easier when you feel halfway decent. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: T1: T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
| Alicia C. Staley @stales T1: Started in 2008 when I joined twitter to connect w/ other patients to learn more. Went into overdrive when #bcsm launched in 2011 #lcsm |
| Janet Freeman-Daily @JFreemanDaily Note: those of you using tchat.io or tweetchat may need to readTwitter feed to see the tweets that are longer than 140 characters #lcsm |
| Karen Loss @cancertrek T1: I update a Facebook page with current LC news and human interest several times a week. #lcsm |
 | Francisco Caiza Zambrano @panchoCZ RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
| Flemming Rasmussen @fgrazz @fgrazz T1 supplemental...been doing these activities for a decade #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD I tweet, talk, and educate residents, colleagues, administrators, payers, and policymakers. Lung cancer is the number 1 cancer killer. #lcsm #NoStigma #hope https://t.co/DiZva4iarv |
| Alicia C. Staley @stales RT @JFreemanDaily: T1: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at conferences #lcsm |
| Karen Loss @cancertrek T1: I continue to educate a homegrown "update" list a couple of times a month with personalized lung cancer info. Hundreds strong. #lcsm |
| Kathleen Skambis @KathleenSkambis #lcsm T1: started activism 2007. Been to the Hill. Spread word social media and will talk to any group anywhere. Have spoken various locs |
 | Suzanne @Suzanne32445773 RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
 | Phil Talamo @philtalamo RT @JackWestMD: Are PD-1/PD-L1 immune checkpoint inhibitors interchangeable in lung cancer? @BeaconMedIC video: |
| Janet Freeman-Daily @JFreemanDaily Wow, we have a lot of long-time advocates joining us tonight! Thank you for your service to others. #lcsm |
| Faces of Lung Cancer @LungCancerFaces T1: I've been at it since the end of 2012. Discovered Twitter while spending weeks in hospital with mom. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at conferences #lcsm |
| Flemming Rasmussen @fgrazz @JFreemanDaily who would even dare to tweet > 104 char ;<) #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T1: T1: My main focus is awareness and education. I do speaking engagements, write blog columns occasionally, and do 1 on 1 constantly. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Wow, we have a lot of long-time advocates joining us tonight! Thank you for your service to others. #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: Been doing patient advocacy for about 4 years of my 5 year lung cancer experience. #lcsm |
| #LCSM Chat @lcsmchat RT @ChancesR3: T1 - I advocate for my hubby since stage 4 dx 2012. Last 2 years more care needed but we try to learn all we can as 2 research & educate others that u just need lungs to get LC. #lcsm |
| #LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T1: @JFreemanDaily T1: I raise money & awareness of the need for cancer research funding for researchers like @WhetstineLab #LCSM |
| Bob Steele @steele_bob T1: Wife/I both diagnosed w/cancer in 2013 (breast, melanoma) but have continued LC advocacy. Far-greater need for fund raising. #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: #lcsm 18 yr bilateral lung ca survivor. Work with @lungforce and @LungAssociation and generally advocate for awareness and research $$ |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: I guess I started "advocating" when I started writing my blog in April 2012. Got really active in 2013 w/#LCSM. #lcsm |
| #LCSM Chat @lcsmchat RT @LungLove4Mom: #lcsm I helped start the #lunglovewalk 5k in Houston along with other awesome people and @LCAorg We just had our 4th walk on Nov. 5th :) |
| Anita Figueras @scifiknitter @ChancesR3 @LungCancerFaces 🤞🤞🤞🤞for Corky! #LCSM |
| #LCSM Chat @lcsmchat RT @steele_bob: T1: T1: My dad passed at 58 from LC. Wife & I became active advocates in 2007 w/ Lung Cancer Initiative of NC. #lcsm |
| #LCSM Chat @lcsmchat RT @fgrazz: Get involved in local community cancer support groups, attend proximate cancer conferences, active on SM,work on a new cancer theory #lcsm |
| Flemming Rasmussen @fgrazz RT @JFreemanDaily: Wow, we have a lot of long-time advocates joining us tonight! Thank you for your service to others. #lcsm |
| Danielle Pardue @Actorielle RT @steele_bob: T1: T1: Wife/I both diagnosed w/cancer in 2013 (breast, melanoma) but have continued LC advocacy. Far-greater need for fund raising. #lcsm |
| These Are My Scars @TheseAreMyScars T1. I began “advocating” first for myself in 2011 when I was sent home to wait for symptoms to treat, I was 32. Through that experience, I learned about ALk and it’s TXs, Now I advocate for others and blog. #lcsm |
| Danielle Pardue @Actorielle RT @JackWestMD: T1: |
| #LCSM Chat @lcsmchat RT @stales: T1: T1: Started in 2008 when I joined twitter to connect w/ other patients to learn more. Went into overdrive when #bcsm launched in 2011 #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Note: Note: those of you using tchat.io or tweetchat may need to readTwitter feed to see the tweets that are longer than 140 characters #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: Patient advocates do more than just writing, speaking, or fundraising. You might work with newly-dx patients and families. #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T1: T1: I update a Facebook page with current LC news and human interest several times a week. #lcsm |
| #LCSM Chat @lcsmchat RT @fgrazz: @fgrazz T1 supplemental...been doing these activities for a decade #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: I tweet, talk, and educate residents, colleagues, administrators, payers, and policymakers. Lung cancer is the number 1 cancer killer. #lcsm #NoStigma #hope https://t.co/DiZva4iarv |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1: T1: Patient advocates do more than just writing, speaking, or fundraising. You might work with newly-dx patients and families. #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T1: T1: I continue to educate a homegrown "update" list a couple of times a month with personalized lung cancer info. Hundreds strong. #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: #lcsm T1: #lcsm T1: started activism 2007. Been to the Hill. Spread word social media and will talk to any group anywhere. Have spoken various locs |
| Janet Freeman-Daily @JFreemanDaily Topic T2 is coming up … #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Wow, we have a lot of long-time advocates joining us tonight! Thank you for your service to others. #lcsm |
| #LCSM Chat @lcsmchat RT @JackWestMD: T1: |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T1: T1: I've been at it since the end of 2012. Discovered Twitter while spending weeks in hospital with mom. #lcsm |
| Naomi @ChancesR3 @scifiknitter @LungCancerFaces How are you my friend? #lcsm |
| #LCSM Chat @lcsmchat RT @steele_bob: T1: T1: Wife/I both diagnosed w/cancer in 2013 (breast, melanoma) but have continued LC advocacy. Far-greater need for fund raising. #lcsm |
| Karen Loss @cancertrek T1: Also, I've done fundraising for some of the non-profits for 4 years running. #lcsm |
| Danielle Pardue @Actorielle T1 I try to give fellow caregivers a safe space to vent, and a sense of fellowship #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD Glad you were able to join us! #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: T1. I began “advocating” first for myself in 2011 when I was sent home to wait for symptoms to treat, I was 32. Through that experience, I learned about ALk and it’s TXs, Now I advocate for others and blog. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: Patient advocates do more than just writing, speaking, or fundraising. You might work with newly-dx patients and families. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: What events/situations in your advocacy work have caused you the most stress and/or distress? How do you cope in real time? #lcsm |
| Faces of Lung Cancer @LungCancerFaces @JFreemanDaily @JackWestMD And very glad for https://t.co/8I9tue5ZBf. I support it with my Amazon Smile purchases. #lcsm |
| Tessa Sheldon @tessa_perrin I've been "advocating" since I looked up lung cancer stats online the night mama was dx...and nearly fainted when I saw what dr. Google has to say. #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: T1 I try to give fellow caregivers a safe space to vent, and a sense of fellowship #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T1: T1: Also, I've done fundraising for some of the non-profits for 4 years running. #lcsm |
| These Are My Scars @TheseAreMyScars T1. I have been able to speak internationally, lobby my MPs, both locally, Provincially and Federally. #lcsm |
| Karen Loss @cancertrek T2: The difficulty with getting media coverage has been an ongoing frustration for me. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #LivinOnTheEdge #lcsm #140orFight https://t.co/EnmXqrNamZ |
| Flemming Rasmussen @fgrazz @JFreemanDaily yes, comes with the passion...lots of connections fm pt to gifted researchers/specialists...listening is a key aspect #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: What events/situations in your advocacy work have caused you the most stress and/or distress? How do you cope in real time? #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: @JFreemanDaily @JackWestMD And very glad for https://t.co/8I9tue5ZBf. I support it with my Amazon Smile purchases. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T1: T1: Patient advocates do more than just writing, speaking, or fundraising. You might work with newly-dx patients and families. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T2: T2: What events/situations in your advocacy work have caused you the most stress and/or distress? How do you cope in real time? #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: As we discussed in a previous chat, loss of fellow patients is a blow to my advocacy energies. #lcsm |
| Dave Bjork @bjork5 @itsthebunk @LungCancerFaces Hey there Liza #LCSM 😎 |
| Naomi @ChancesR3 @cancertrek @lcsmchat Same here! #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T2: T2: What events/situations in your advocacy work have caused you the most stress and/or distress? How do you cope in real time? #lcsm |
| Frank Ingram, MD @Chucktowndoc T1: Since 2007. I speak to local patient support groups about cancer pathology. Trying to play a bigger role...made my first visit to the state capitol to speak with legislators this year. #LCSM |
| Tessa Sheldon @tessa_perrin T2: the most frustrating thing is the smoking stigma. Hands down. When people ask if she smoked I just reply "Does it matter????" #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @Chucktowndoc: T1: T1: Since 2007. I speak to local patient support groups about cancer pathology. Trying to play a bigger role...made my first visit to the state capitol to speak with legislators this year. #LCSM |
 | Saman Maleki, PhD @SMImmunology These are true faces of #Lungcancer. Cancer that kills more people than any other cancer and is almost ignored by many. #LungCancerAwareness https://t.co/oLQTLs8sfy |
| Faces of Lung Cancer @LungCancerFaces T2: Media not covering us. Stigma still a huge issue. Lack of unity among the various lung cancer groups around a core issue(s). #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: I also find it tough to be the target of anger from patients/carers who are hurting. I understand, but it stings. #lcsm |
| Anita Figueras @scifiknitter T1. I mostly aggregate and share info. Have done some public speaking for ALA and advocated on Capital Hill twice this year. Big effort right now is startup of @EGFRResisters with 6 other advocates. #lcsm |
 | Lung Cancer Sux @LungCancerSux RT @LungCancerFaces: @JFreemanDaily @JackWestMD And very glad for https://t.co/8I9tue5ZBf. I support it with my Amazon Smile purchases. #lcsm |
| These Are My Scars @TheseAreMyScars T2. Sometimes advocacy work and it’s dedication can interfere with family time, it’s hard to balance sometimes. I cope by stepping back for short time and refocus my energies. #lcsm |
| Danielle Pardue @Actorielle T2: This is odd,but: folks who still buy in 100% to the smoking stigma OR big pharma conspiracies have stopped me talking mid-sentence #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD This #WhyDoYouGoToWork? #lcsm https://t.co/myMoG5uOSd |
| john @JohnLPender T2 The fact that no one in the world seems to care. #lcsm |
| Faces of Lung Cancer @LungCancerFaces T2: Losing our friends. Seems to come in bunches. Very tough sometimes. That's why we have to keep on keeping on. For them. #lcsm |
| Danielle Pardue @Actorielle RT @tessa_perrin: T2: T2: the most frustrating thing is the smoking stigma. Hands down. When people ask if she smoked I just reply "Does it matter????" #lcsm |
| Danielle Pardue @Actorielle RT @LungCancerFaces: T2: T2: Losing our friends. Seems to come in bunches. Very tough sometimes. That's why we have to keep on keeping on. For them. #lcsm |
| Alicia C. Staley @stales MT @JFreemanDaily T2: What events/situations in your advocacy work have caused most stress and/or distress? How do you cope? #lcsm |
| Faces of Lung Cancer @LungCancerFaces THIS RT @JohnLPender: T2 The fact that no one in the world seems to care. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T2: T2: I also find it tough to be the target of anger from patients/carers who are hurting. I understand, but it stings. #lcsm |
| Danielle Pardue @Actorielle RT @LungCancerFaces: T2: T2: Media not covering us. Stigma still a huge issue. Lack of unity among the various lung cancer groups around a core issue(s). #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #ButTheNarrative #lcsm #NoStigma #PatientsFirst https://t.co/VwzhIDOl01 |
| Flemming Rasmussen @fgrazz @TheseAreMyScars T1 - Me too. I have found varied interest levels. Makes me appreciate value of a soulful & sharpened elevator pitch #lcsm |
| Alicia C. Staley @stales T2: Losing our friends and advocate mentors on a regular basis. #lcsm |
| #LCSM Chat @lcsmchat RT @tessa_perrin: I've been "advocating" since I looked up lung cancer stats online the night mama was dx...and nearly fainted when I saw what dr. Google has to say. #lcsm |
| Kristy Rogers @LungLove4Mom #lcsm T2 when we lose someone in our group or they get sick. :( Finding volunteers, sponsors and support is tough too. |
| #LCSM Chat @lcsmchat RT @cancertrek: T2: T2: The difficulty with getting media coverage has been an ongoing frustration for me. #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: T1. I have been able to speak internationally, lobby my MPs, both locally, Provincially and Federally. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: As we discussed in a previous chat, loss of fellow patients is a blow to my advocacy energies. #lcsm |
 | Jennifer C. King, PhD @JenniferCKing RT @LCAorg: Our very own @JenniferCKing discusses the changing face of #lungcancer and the importance of research, Check it out! @ResearchAmerica #LCAM #LCSM >>https://t.co/EwXAFolWbU |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T1: T1: Since 2007. I speak to local patient support groups about cancer pathology. Trying to play a bigger role...made my first visit to the state capitol to speak with legislators this year. #LCSM |
| Alicia C. Staley @stales T2: Feeling like progress is too slow to actually make an impact. #lcsm |
| #LCSM Chat @lcsmchat RT @tessa_perrin: T2: T2: the most frustrating thing is the smoking stigma. Hands down. When people ask if she smoked I just reply "Does it matter????" #lcsm |
| Tessa Sheldon @tessa_perrin T2: because yep she smoked. Everyone seemed to during most of my life. We hated it. But whatever. I drink Diet Pepsi EVERY DAY bc I love it knowing it's horrible for me. People say THAT causes cancer, but if I got something, it's still not the stigma of smoking. #lcsm |
| These Are My Scars @TheseAreMyScars Having to constantly claw up the #stigma hill, being ignored by media inquiries, having to fight he government to fund lifesaving treatments #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T2: T2: Media not covering us. Stigma still a huge issue. Lack of unity among the various lung cancer groups around a core issue(s). #lcsm |
| These Are My Scars @TheseAreMyScars RT @JackWestMD: T2: Like many others, stigma re: |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: I also find it tough to be the target of anger from patients/carers who are hurting. I understand, but it stings. #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: T1. I mostly aggregate and share info. Have done some public speaking for ALA and advocated on Capital Hill twice this year. Big effort right now is startup of @EGFRResisters with 6 other advocates. #lcsm |
| Danielle Pardue @Actorielle #lcsm https://t.co/II1U6I1HFp |
 | DaveisAliveAndKickn @AliveAndKicknDD 3x #lynchsyndrome survivor, above average soccer player and coach, advocate since I had hair #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: T2. Sometimes advocacy work and it’s dedication can interfere with family time, it’s hard to balance sometimes. I cope by stepping back for short time and refocus my energies. #lcsm |
 | 🇵🇸🇲🇾Azila Mustafa🇵🇸🇲🇾 @EylaAzila RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
| Janet Freeman-Daily @JFreemanDaily @fgrazz @fgrazz :p #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: T2: This is odd,but: T2: This is odd,but: folks who still buy in 100% to the smoking stigma OR big pharma conspiracies have stopped me talking mid-sentence #lcsm |
| Danielle Pardue @Actorielle RT @stales: T2: T2: Losing our friends and advocate mentors on a regular basis. #lcsm |
| lysa buonanno @lysabee T2 losing friends is the most difficult for me. try to exercise, meditate, pray, talk to others to cope #lcsm |
| Naomi @ChancesR3 Exactly - This! #lcsm https://t.co/LEyZGvzAae |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: This #WhyDoYouGoToWork? #lcsm https://t.co/myMoG5uOSd |
| #LCSM Chat @lcsmchat RT @JohnLPender: T2 The fact that no one in the world seems to care. #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T2: T2: Losing our friends. Seems to come in bunches. Very tough sometimes. That's why we have to keep on keeping on. For them. #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @LungCancerFaces: @JFreemanDaily @JackWestMD And very glad for https://t.co/8I9tue5ZBf. I support it with my Amazon Smile purchases. #lcsm |
| Kristy Rogers @LungLove4Mom RT @LungCancerFaces: THIS RT @JohnLPender: THIS RT @JohnLPender: T2 The fact that no one in the world seems to care. #lcsm |
| Bob Steele @steele_bob T2: 2 major issues. 1) Losing friends all too frequently (sometimes daily), 2) Non-responsiveness of Corps for sponsor/donations. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: #ButTheNarrative #lcsm #NoStigma #PatientsFirst https://t.co/VwzhIDOl01 |
| Dave Bjork @bjork5 T2: the stigma has annoyed me for many years & frustrates me. I never smoked but always get "the question" #lcsm |
| #LCSM Chat @lcsmchat RT @JackWestMD: T2: Like many others, stigma re: |
| Kathleen Skambis @KathleenSkambis T2: varying ideas of how to with stigma or ignorance of it. So many losses of both longtime friends and those I've met via activism #lcsm |
| Danielle Pardue @Actorielle RT @steele_bob: T2: T2: 2 major issues. 1) Losing friends all too frequently (sometimes daily), 2) Non-responsiveness of Corps for sponsor/donations. #lcsm |
| #LCSM Chat @lcsmchat RT @fgrazz: @TheseAreMyScars T1 - Me too. I have found varied interest levels. Makes me appreciate value of a soulful & sharpened elevator pitch #lcsm |
| #LCSM Chat @lcsmchat RT @stales: T2: T2: Losing our friends and advocate mentors on a regular basis. #lcsm |
| #LCSM Chat @lcsmchat RT @LungLove4Mom: #lcsm T2 when we lose someone in our group or they get sick. :( Finding volunteers, sponsors and support is tough too. |
| #LCSM Chat @lcsmchat RT @stales: T2: T2: Feeling like progress is too slow to actually make an impact. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @ChancesR3: Exactly - This! #lcsm https://t.co/LEyZGvzAae |
| lysa buonanno @lysabee T2 no media attention drives me crazy! I've been trying for years to get more attention locally #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lysabee: T2 losing friends is the most difficult for me. try to exercise, meditate, pray, talk to others to cope #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: Having to constantly claw up the #stigma hill, being ignored by media inquiries, having to fight he government to fund lifesaving treatments #lcsm |
| Flemming Rasmussen @fgrazz T2 - The view by some that the path we are on is solid & money alone will address the cancer puzzle... #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: T2 losing friends is the most difficult for me. try to exercise, meditate, pray, talk to others to cope #lcsm |
| Geri Massa @GeriGerim13 T2 the stigma is everywhere #LCSM https://t.co/Fay9MaMuaL |
| #LCSM Chat @lcsmchat RT @steele_bob: T2: T2: 2 major issues. 1) Losing friends all too frequently (sometimes daily), 2) Non-responsiveness of Corps for sponsor/donations. #lcsm |
| #LCSM Chat @lcsmchat RT @bjork5: T2: T2: the stigma has annoyed me for many years & frustrates me. I never smoked but always get "the question" #lcsm |
| These Are My Scars @TheseAreMyScars Yes!!! #KeepYourEyesonthePrize https://t.co/6tBdPIy8sm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T2: T2: varying ideas of how to with stigma or ignorance of it. So many losses of both longtime friends and those I've met via activism #lcsm |
| Tessa Sheldon @tessa_perrin T2 I'm also meeting some really amazing people and it's hard to lose them, see them worry...and not be able to help #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: T2 no media attention drives me crazy! I've been trying for years to get more attention locally #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #NoStigma #GovernmentIsPower #lcsm https://t.co/1ztYWqF5TX |
| Bob Steele @steele_bob RT @lysabee: T2 no media attention drives me crazy! I've been trying for years to get more attention locally #lcsm |
| DaveisAliveAndKickn @AliveAndKicknDD T2 biggest cause of stress as an advocate is watching others seemingly go out of their way to make themselves unhealthy #lcsm |
| Naomi @ChancesR3 T2 - the aggressive nature of LC - finding new treatments and then having the inevitable progression step in. #lcsm |
| #LCSM Chat @lcsmchat RT @fgrazz: T2 - The view by some that the path we are on is solid & money alone will address the cancer puzzle... #lcsm |
| #LCSM Chat @lcsmchat RT @tessa_perrin: T2 I'm also meeting some really amazing people and it's hard to lose them, see them worry...and not be able to help #lcsm |
| #LCSM Chat @lcsmchat RT @ChancesR3: T2 - the aggressive nature of LC - finding new treatments and then having the inevitable progression step in. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @steele_bob: T2: T2: 2 major issues. 1) Losing friends all too frequently (sometimes daily), 2) Non-responsiveness of Corps for sponsor/donations. #lcsm |
| colleen ziegler @ZieglerColleen #lcsm losing people and how little people know or understand about lung cancer |
| Bob Steele @steele_bob RT @stales: T2: T2: Feeling like progress is too slow to actually make an impact. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @GeriGerim13: T2 the stigma is everywhere #LCSM https://t.co/Fay9MaMuaL |
| SunshineKK @SunshineKK68 the media nor the public understands the crisis of 433 deaths/day--so frustrating--hardly covered on the media #lcsm |
 | Jim Bordeaux @JBordeaux9 #lcsm |
| Bob Steele @steele_bob RT @JackWestMD: T2: Like many others, stigma re: |
| Alicia C. Staley @stales RT @bjork5: T2: T2: the stigma has annoyed me for many years & frustrates me. I never smoked but always get "the question" #lcsm |
| Alicia C. Staley @stales RT @JFreemanDaily: T2: T2: I also find it tough to be the target of anger from patients/carers who are hurting. I understand, but it stings. #lcsm |
| Alicia C. Staley @stales RT @JackWestMD: Agree, as onc too. Maybe not mentors, but beloved pts. RT @stales: T2: |
| Bob Steele @steele_bob RT @JFreemanDaily: T2: T2: I also find it tough to be the target of anger from patients/carers who are hurting. I understand, but it stings. #lcsm |
| Flemming Rasmussen @fgrazz RT @LungCancerFaces: THIS MT @JohnLPender: T2 The fact that all too often the care factor from the world seems absent #lcsm |
| These Are My Scars @TheseAreMyScars Yes! A lot of the time, sometimes it’s for big stuff, sometimes it’s small, but it’s exhausting!! https://t.co/OiyiKdUdXf |
| Bob Steele @steele_bob RT @LungCancerFaces: T2: T2: Losing our friends. Seems to come in bunches. Very tough sometimes. That's why we have to keep on keeping on. For them. #lcsm |
 | Denise Cutlip @dennycee I’m here I’m late. T1: I volunteer as Link Navigator at the infusion and radiation center. Also weekly Lung Cancer Clinic, meeting pts who just received dx #LCSM |
| Bob Steele @steele_bob RT @JohnLPender: T2 The fact that no one in the world seems to care. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: I find it tough to know something that WILL help a #cancer patient (e.g., tumor testing, or second opinion) and have the patient say "Oh no, my doc doesn't think it's necessary, and I trust him/her" #LCSM |
| Flemming Rasmussen @fgrazz RT @LungCancerFaces: T2: T2: Media not covering us. Stigma still a huge issue. Lack of unity among the various lung cancer groups around a core issue(s). #lcsm |
| Kathleen Skambis @KathleenSkambis T2 cope by remembering those I've lost, my good luck, fact that I am trained as advocate (trial lawyer), Exercise and non-ca friends #lcsm |
| #LCSM Chat @lcsmchat RT @JackWestMD: Agree, as onc too. Maybe not mentors, but beloved pts. RT @stales: T2: |
| #LCSM Chat @lcsmchat RT @ZieglerColleen: #lcsm losing people and how little people know or understand about lung cancer |
| #LCSM Chat @lcsmchat RT @SunshineKK68: the media nor the public understands the crisis of 433 deaths/day--so frustrating--hardly covered on the media #lcsm |
| #LCSM Chat @lcsmchat RT @fgrazz: RT @LungCancerFaces: THIS MT @JohnLPender: RT @LungCancerFaces: THIS MT @JohnLPender: T2 The fact that all too often the care factor from the world seems absent #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: I’m here I’m late. T1: I’m here I’m late. T1: I volunteer as Link Navigator at the infusion and radiation center. Also weekly Lung Cancer Clinic, meeting pts who just received dx #LCSM |
| Janet Freeman-Daily @JFreemanDaily We’ll shift to Topic T3 next … #lcsm |
| Frank Ingram, MD @Chucktowndoc T2: patients and loved ones who are angry/frustrated NEAR me...often hard to remember they aren’t angry/frustrated WITH me. Hard not to internalize it. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: I find it tough to know something that WILL help a #cancer patient (e.g., tumor testing, or second opinion) and have the patient say "Oh no, my doc doesn't think it's necessary, and I trust him/her" #LCSM |
| SOTS @sparkyontheseas @LungCancerFaces I’ll call the media out if they have a story about a minor health issue when 433 a day die from LC. #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T2 cope by remembering those I've lost, my good luck, fact that I am trained as advocate (trial lawyer), Exercise and non-ca friends #lcsm |
| These Are My Scars @TheseAreMyScars I second this and add...it’s not funded/we can’t afford it. #lcsm https://t.co/qH8H3MFUZn |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD You are brave to put yourself out there. They're hurting and scared to death. Let the sting go if you can, it's not personal. You make a huge difference. #CarryOn #lcsm https://t.co/ha6tI6df2r |
| Bob Steele @steele_bob RT @sparkyontheseas: @LungCancerFaces I’ll call the media out if they have a story about a minor health issue when 433 a day die from LC. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @Chucktowndoc: T2: T2: patients and loved ones who are angry/frustrated NEAR me...often hard to remember they aren’t angry/frustrated WITH me. Hard not to internalize it. #LCSM |
 | Darrell Polk 1 @polksbc1 RT @LungCancerFaces: T2: T2: Media not covering us. Stigma still a huge issue. Lack of unity among the various lung cancer groups around a core issue(s). #lcsm |
| Faces of Lung Cancer @LungCancerFaces @sparkyontheseas I will see you soon for the next L&B Rally. #433aDay #lcsm |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T2: T2: patients and loved ones who are angry/frustrated NEAR me...often hard to remember they aren’t angry/frustrated WITH me. Hard not to internalize it. #LCSM |
| SunshineKK @SunshineKK68 How can LC get the crisis level coverage it needs #lcsm |
| Kristy Rogers @LungLove4Mom #lcsm T2 I cope by knowing my Moma is smiling down on me from heaven and any effort is better than no effort. Onwards and upwards 💜 |
| #LCSM Chat @lcsmchat RT @sparkyontheseas: @LungCancerFaces I’ll call the media out if they have a story about a minor health issue when 433 a day die from LC. #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: I second this and add...it’s not funded/we can’t afford it. #lcsm https://t.co/qH8H3MFUZn |
| lysa buonanno @lysabee @LungCancerFaces @sparkyontheseas yay! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point, what persuaded you to continue? #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: You are brave to put yourself out there. They're hurting and scared to death. Let the sting go if you can, it's not personal. You make a huge difference. #CarryOn #lcsm https://t.co/ha6tI6df2r |
| Flemming Rasmussen @fgrazz T2 - coping for me when rebuffed' involves not judging, regrouping, revisiting my position...then its time to get back on the horse #lcsm |
| #LCSM Chat @lcsmchat RT @LungLove4Mom: #lcsm T2 I cope by knowing my Moma is smiling down on me from heaven and any effort is better than no effort. Onwards and upwards 💜 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point, what persuaded you to continue? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD There is much work left to do. #lcsm https://t.co/I6t3PNQKKV |
 | Jessica G.Y. Luc, MD @JessicaLuc1 I am Jessica Luc, a fourth year medical student from @UAlberta_FoMD. Sorry I am late to the #lcsm tweetchat but looking forward to a great discussion #meded #advocate #patientscomefirst |
| Bob Steele @steele_bob RT @LungLove4Mom: #lcsm T2 I cope by knowing my Moma is smiling down on me from heaven and any effort is better than no effort. Onwards and upwards 💜 |
| Denise Cutlip @dennycee T2: refused to volunteer at Great Smokeout today. My supervisor understood stigma. Next year they get T-shirt’s and posters will carry heart disease and picture the other 30 cancers #LCSM |
| Faces of Lung Cancer @LungCancerFaces T3: Yes, I think about quitting at least once a week. By mid-November, every day. I won't, though. Too much riding on it. #lcsm |
| lysa buonanno @lysabee @JessicaLuc1 @UAlberta_FoMD thanks for joining us #lcsm |
 | Mara Antonoff, MD, FACS @maraantonoff @JFreemanDaily Agree completely! #lcsm |
| #LCSM Chat @lcsmchat RT @fgrazz: T2 - coping for me when rebuffed' involves not judging, regrouping, revisiting my position...then its time to get back on the horse #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #Resilient #lcsm https://t.co/QLrEiEteCz |
| Danielle Pardue @Actorielle RT @LungCancerFaces: T3: T3: Yes, I think about quitting at least once a week. By mid-November, every day. I won't, though. Too much riding on it. #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: T2: T2: refused to volunteer at Great Smokeout today. My supervisor understood stigma. Next year they get T-shirt’s and posters will carry heart disease and picture the other 30 cancers #LCSM |
| Karen Loss @cancertrek T3: What was question 3? #lcsm |
| Bob Steele @steele_bob I missed T3 #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T3: T3: Yes, I think about quitting at least once a week. By mid-November, every day. I won't, though. Too much riding on it. #lcsm |
| Kathleen Skambis @KathleenSkambis T3: I set mental time frames by which I will stop and reconsider if I want to go on with high level of activism. Helps me continue. #lcsm |
| Flemming Rasmussen @fgrazz @TimAllenMDJD Indeed...in aspects of our lives! #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @TheseAreMyScars: I second this and add...it’s not funded/we can’t afford it. #lcsm https://t.co/qH8H3MFUZn |
| These Are My Scars @TheseAreMyScars T3. I could never quit, but I do periodically take mental health breaks. Advocacy for me is always about doing for others who can’t, but sometimes the loss, tragedy and frustration is just too much. As a patient, I need to put me first. #lcsm |
| Denise Cutlip @dennycee T3: as long as I draw breath I will advocate. When I can’t get out of bed I’ll access the internet from bed. #LCSM |
| colleen ziegler @ZieglerColleen #lcsm T3 No, not as long as I am able to advocate. It does get hard |
| Bob Steele @steele_bob RT @dennycee: T3: T3: as long as I draw breath I will advocate. When I can’t get out of bed I’ll access the internet from bed. #LCSM |
| lysa buonanno @lysabee many of us didn't see T3 #lcsm |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/9Y5t0UOu4e |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD These are my patients #lcsm https://t.co/s0pvkWf8JQ |
| Karen Loss @cancertrek T3: I've determined which forms of advocacy I want to continue or discontinue, mainly to suit what I am best at. #lcsm |
| DaveisAliveAndKickn @AliveAndKicknDD @lysabee usually it's in the form of lifestyle choices or not following recommended guidelines #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point, what persuaded you to continue? #LCSM |
| Janet Freeman-Daily @JFreemanDaily Remember to use #lcsm in all your tweets so others participating in the chat can see them #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @fgrazz: @TimAllenMDJD Indeed...in aspects of our lives! #LCSM |
| Flemming Rasmussen @fgrazz @steele_bob @TheseAreMyScars me too...can't find precise T3 in stream #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: T3. I could never quit, but I do periodically take mental health breaks. Advocacy for me is always about doing for others who can’t, but sometimes the loss, tragedy and frustration is just too much. As a patient, I need to put me first. #lcsm |
| Karen Loss @cancertrek T3: So, I won't stop advocating, but may adjust the manner in which I go about my work in this realm. #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: T3: T3: as long as I draw breath I will advocate. When I can’t get out of bed I’ll access the internet from bed. #LCSM |
| Janet Freeman-Daily @JFreemanDaily As always, you can just tweet “#LCSM” to let us know you're watching the chat #lcsm |
| #LCSM Chat @lcsmchat RT @ZieglerColleen: #lcsm T3 No, not as long as I am able to advocate. It does get hard |
| Dave Bjork @bjork5 T3: never considered quitting. Especially having met so many fellow advocates the past 4 years #lcsm |
| Anita Figueras @scifiknitter T3 No, I have not considered quitting. I'm not fit to do anything else anymore, LOL! #lcsm |
| Naomi @ChancesR3 RT @TimAllenMDJD: These are my patients #lcsm https://t.co/s0pvkWf8JQ |
| Frank Ingram, MD @Chucktowndoc T3: The work with patient groups I love. Working with politicians this year I must say I find distasteful. I would quit that in a minute if it weren’t so vital. #LCSM |
| #LCSM Chat @lcsmchat T3: paraphrased: Have you considered quitting? https://t.co/jBktDhSVsf |
| Danielle Pardue @Actorielle @scifiknitter Saaaaaaaame, my friend! #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: These are my patients #lcsm https://t.co/s0pvkWf8JQ |
| colleen ziegler @ZieglerColleen RT @scifiknitter: T3 No, I have not considered quitting. I'm not fit to do anything else anymore, LOL! #lcsm |
| Janet Freeman-Daily @JFreemanDaily repeating T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point, what persuaded you to continue? #LCSM |
| Denise Cutlip @dennycee RT @JFreemanDaily: T3: T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point, what persuaded you to continue? #LCSM |
| #LCSM Chat @lcsmchat RT @cancertrek: T3: T3: I've determined which forms of advocacy I want to continue or discontinue, mainly to suit what I am best at. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Remember to use #lcsm in all your tweets so others participating in the chat can see them #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T3: T3: So, I won't stop advocating, but may adjust the manner in which I go about my work in this realm. #lcsm |
| #LCSM Chat @lcsmchat RT @bjork5: T3: T3: never considered quitting. Especially having met so many fellow advocates the past 4 years #lcsm |
| lysa buonanno @lysabee T3 I take short breaks when it's too much but noever quit #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: T3 No, I have not considered quitting. I'm not fit to do anything else anymore, LOL! #lcsm |
| Geri Massa @GeriGerim13 I’m here lurking 👍 #LCSM |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T3: T3: The work with patient groups I love. Working with politicians this year I must say I find distasteful. I would quit that in a minute if it weren’t so vital. #LCSM |
| Mara Antonoff, MD, FACS @maraantonoff @inspired4living @JFreemanDaily I can’t tell you how often I see people who got the wrong treatment the first time around based on poor recommendations. Everyone deserves access to the best chance for cure! #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @JessicaLuc1: I am Jessica Luc, a fourth year medical student from @UAlberta_FoMD. Sorry I am late to the #lcsm tweetchat but looking forward to a great discussion #meded #advocate #patientscomefirst |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: repeating T3: repeating T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point, what persuaded you to continue? #LCSM |
| Anita Figueras @scifiknitter This is making a difference! #LCSM https://t.co/Eun7TbgqsS |
| Bob Steele @steele_bob Very frustrated at my inability to finish advocacy articles. Gone way overboard on research. Can't find the right words & I'm a writer #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #lcsm https://t.co/ID1FUw1Y4J |
| DaveisAliveAndKickn @AliveAndKicknDD T3 it never gets easier seeing friends suffer or die too soon, but no, I've never considered not doing this #itsinmyDNA #LCSM |
| Naomi @ChancesR3 @bjork5 I agree- meeting this community has made such a difference and continues to inspire advocacy. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: I took a month off to regroup recently--I was so exhausted I wasn't enjoying life anymore. Must keep my own cup full too. #lcsm |
| colleen ziegler @ZieglerColleen RT @scifiknitter: This is making a difference! #LCSM https://t.co/Eun7TbgqsS |
| Kathleen Skambis @KathleenSkambis T3: in my soul, I'm an advocate. Will always be for lung ca. Only issue is how much of my life gets used that way. #lcsm |
| lysa buonanno @lysabee T3 used to say yes to everything; got more picky. invest time where I make most difference #lcsm |
| Flemming Rasmussen @fgrazz T3 from blog - part 1 - Have you ever considered quitting your advocacy work? #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 T3: Success means doing the best we can with what we have. Success is in the doing, not the getting – in the trying, not the triumph. Convert your adversity into opportunity #LCSM |
| Naomi @ChancesR3 @JFreemanDaily Janet your travel for advocacy has been amazing but must be exhausting. Thank you! Take time to rest too. #lcsm |
| Flemming Rasmussen @fgrazz T3 from blog part 2 - if you continued your patient advocacy work after that point, what persuaded you to continue? #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @JessicaLuc1: T3: T3: Success means doing the best we can with what we have. Success is in the doing, not the getting – in the trying, not the triumph. Convert your adversity into opportunity #LCSM |
| Jessica G.Y. Luc, MD @JessicaLuc1 T2: How to cope - focus on execution based performance goals rather than results based. This keeps me in line with the reality that the only parts of success I can control are my personal effort and attitude to complete a goal rather than reach a specific target. #LCSM |
| Faces of Lung Cancer @LungCancerFaces T3: Look at all the wonderful people involved in advocacy: patients, caregivers, researchers, docs! If they can do it, I can do it. #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @JessicaLuc1: T2: T2: How to cope - focus on execution based performance goals rather than results based. This keeps me in line with the reality that the only parts of success I can control are my personal effort and attitude to complete a goal rather than reach a specific target. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Please, write them anyway. #lcsm https://t.co/icDwFWodMm |
| These Are My Scars @TheseAreMyScars #WriterProblems I have this same problem at the present!! #lcsm https://t.co/C4fy61rkay |
| Janet Freeman-Daily @JFreemanDaily It appears that tweets over 140 characters that I post on Twitter are not appearing in the tchat.io feed reliably. Sorry. #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: T3 I take short breaks when it's too much but noever quit #lcsm |
| Karen Loss @cancertrek RT @JackWestMD: |
| #LCSM Chat @lcsmchat RT @maraantonoff: @inspired4living @JFreemanDaily I can’t tell you how often I see people who got the wrong treatment the first time around based on poor recommendations. Everyone deserves access to the best chance for cure! #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: This is making a difference! #LCSM https://t.co/Eun7TbgqsS |
| #LCSM Chat @lcsmchat RT @steele_bob: Very frustrated at my inability to finish advocacy articles. Gone way overboard on research. Can't find the right words & I'm a writer #lcsm |
| #LCSM Chat @lcsmchat RT @AliveAndKicknDD: T3 it never gets easier seeing friends suffer or die too soon, but no, I've never considered not doing this #itsinmyDNA #LCSM |
| #LCSM Chat @lcsmchat RT @ChancesR3: @bjork5 I agree- meeting this community has made such a difference and continues to inspire advocacy. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: I took a month off to regroup recently--I was so exhausted I wasn't enjoying life anymore. Must keep my own cup full too. #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T3: T3: in my soul, I'm an advocate. Will always be for lung ca. Only issue is how much of my life gets used that way. #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: T3 used to say yes to everything; got more picky. invest time where I make most difference #lcsm |
| Janet Freeman-Daily @JFreemanDaily Topic T4 is coming up … #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 T3: Martin Luther King "we must accept finite disappointment, but never lose infinite hope" #LCSM |
| #LCSM Chat @lcsmchat RT @ChancesR3: @JFreemanDaily Janet your travel for advocacy has been amazing but must be exhausting. Thank you! Take time to rest too. #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @JessicaLuc1: T3: T3: Martin Luther King "we must accept finite disappointment, but never lose infinite hope" #LCSM |
| Anita Figueras @scifiknitter RT @JFreemanDaily: T3: T3: I took a month off to regroup recently--I was so exhausted I wasn't enjoying life anymore. Must keep my own cup full too. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Can't thank @JFreemanDaily enough. #lcsm https://t.co/cdmrjYHGBI |
| Flemming Rasmussen @fgrazz T3 no, it isn't something I can quit, although the manner it is undertaken does change based on time management & perceived importance #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T3: Look at all the wonderful people involved in advocacy: T3: Look at all the wonderful people involved in advocacy: patients, caregivers, researchers, docs! If they can do it, I can do it. #lcsm |
| #LCSM Chat @lcsmchat RT @JackWestMD: |
| These Are My Scars @TheseAreMyScars RT @JackWestMD: |
| Jim Bordeaux @JBordeaux9 #LCSM T3 aggressive fund raising unsuccessful. But all turned pink and so did the businesses we asked. But it's okay now recharged! |
| lysa buonanno @lysabee @JessicaLuc1 I love that! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: It appears that tweets over 140 characters that I post on Twitter are not appearing in the tchat.io feed reliably. Sorry. #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @lysabee: @JessicaLuc1 @UAlberta_FoMD thanks for joining us #lcsm |
| #LCSM Chat @lcsmchat RT @fgrazz: T3 no, it isn't something I can quit, although the manner it is undertaken does change based on time management & perceived importance #lcsm |
| Anita Figueras @scifiknitter RT @JackWestMD: |
| Flemming Rasmussen @fgrazz RT @LungCancerFaces: T3: Look at all the wonderful people involved in advocacy: T3: Look at all the wonderful people involved in advocacy: patients, caregivers, researchers, docs! If they can do it, I can do it. #lcsm |
| Danielle Pardue @Actorielle RT @JackWestMD: |
| Bob Steele @steele_bob Don't have LC but sick 75% of days with Bronchitis. My cognitive & memory abilities have been sorely dimmed. I want to do more! #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Can't thank @JFreemanDaily enough. #lcsm https://t.co/cdmrjYHGBI |
| #LCSM Chat @lcsmchat RT @JBordeaux9: #LCSM T3 aggressive fund raising unsuccessful. But all turned pink and so did the businesses we asked. But it's okay now recharged! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD No guilt allowed! Thank you for all you do! #lcsm https://t.co/YmvKnTyULF |
| #LCSM Chat @lcsmchat RT @JessicaLuc1: T3: T3: Martin Luther King "we must accept finite disappointment, but never lose infinite hope" #LCSM |
| Janet Freeman-Daily @JFreemanDaily T4: What steps did you take to help recharge advocacy energies? If you take took a break, how long was it and what did you do? #lcsm |
| Flemming Rasmussen @fgrazz RT @JessicaLuc1: T3: T3: Martin Luther King "we must accept finite disappointment, but never lose infinite hope" #LCSM |
| These Are My Scars @TheseAreMyScars You need an assistant 😉 #lcsm https://t.co/HUp2kKy9a0 |
| #LCSM Chat @lcsmchat RT @steele_bob: Don't have LC but sick 75% of days with Bronchitis. My cognitive & memory abilities have been sorely dimmed. I want to do more! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T4: T4: What steps did you take to help recharge advocacy energies? If you take took a break, how long was it and what did you do? #lcsm |
| lysa buonanno @lysabee T4 just a short break usually helps me regroup. a week or so #lcsm |
| Mara Antonoff, MD, FACS @maraantonoff RT @TimAllenMDJD: No guilt allowed! Thank you for all you do! #lcsm https://t.co/YmvKnTyULF |
| Faces of Lung Cancer @LungCancerFaces @TheseAreMyScars Janet needs an assistant and a wife. Just saying. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: What steps did you take to help recharge advocacy energies? If you take took a break, how long was it and what did you do? #lcsm |
| lysa buonanno @lysabee T4 vacations help a lot. renews my gratitude and lights my fire to fight some more #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 @inspired4living .@inspired4living we make the best with what we have. It is in the doing, not the getting – in the trying, not the triumph. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD Aw, garsh. Thank you! #lcsm |
| Karen Loss @cancertrek T4: Since I work full-time, my advocacy calendar is not super full. I actually get recharged whenever I get to do speaking engagements #lcsm |
| Danielle Pardue @Actorielle T4 I don't take intentional breaks. I just go a few days without answering my email sometimes. Then return to the deluge, lol! #lcsm |
| lysa buonanno @lysabee @drCarterHarris science proved that meditation relieves stress. good for you! #lcsm |
| Faces of Lung Cancer @LungCancerFaces T4: I haven't really taken a break. Have gotten more involved as years go by. Will take a nice long one starting next week. #lcsm |
| Flemming Rasmussen @fgrazz T4 - writing and bouncing off latest ideas from research articles off on my Dad, and a few benevolent trusted mentors/snr researchers #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: T4 just a short break usually helps me regroup. a week or so #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: T4 vacations help a lot. renews my gratitude and lights my fire to fight some more #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T4: T4: Since I work full-time, my advocacy calendar is not super full. I actually get recharged whenever I get to do speaking engagements #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 T3: Darwin Kingsley “you all have powers you’ve never dreamed of. You can do things you never thought you could do. There are no limitations in what you can do, except the limitations in your own mind as to what you cannot do. Don’t think you cannot. Think you can.” #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T4 I don't take intentional breaks. I just go a few days without answering my email sometimes. Then return to the deluge, lol! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @JessicaLuc1: T3: T3: Darwin Kingsley “you all have powers you’ve never dreamed of. You can do things you never thought you could do. There are no limitations in what you can do, except the limitations in your own mind as to what you cannot do. Don’t think you cannot. Think you can.” #LCSM |
| Frank Ingram, MD @Chucktowndoc T4: talk to colleagues and friends about my frustrations...stuff like this chat! 🙂 #LCSM |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T4: T4: I haven't really taken a break. Have gotten more involved as years go by. Will take a nice long one starting next week. #lcsm |
| Flemming Rasmussen @fgrazz RT @cancertrek: T4: T4: Since I work full-time, my advocacy calendar is not super full. I actually get recharged whenever I get to do speaking engagements #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: @drCarterHarris science proved that meditation relieves stress. good for you! #lcsm |
| Kathleen Skambis @KathleenSkambis T4: Varying length short breaks to do various things. Sometimes just get off social. Sometimes vacay. #lcsm |
| Jim Bordeaux @JBordeaux9 T4 Took October away for the most part. Everyone needs a break once in awhile. #lcsm |
| These Are My Scars @TheseAreMyScars I take social media breaks, Manet a few days to a week of no FB groups or twitter. I also try to use what I learned from MBSR and meditate. It helps me refocus.That and wine. #lcsm |
| Bob Steele @steele_bob RT @JFreemanDaily: T4: T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| #LCSM Chat @lcsmchat RT @fgrazz: T4 - writing and bouncing off latest ideas from research articles off on my Dad, and a few benevolent trusted mentors/snr researchers #lcsm |
| Naomi @ChancesR3 T4 - no breaks since my husband needs my help more in last 2 of the 5 years since dx. No rest but it’s harder for him. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T4: T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
 | Treatment for Cancer @cancer_tm RT @JFreemanDaily: T1: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at conferences #lcsm |
| These Are My Scars @TheseAreMyScars 🤣 https://t.co/8URUuUbe7c |
| Anita Figueras @scifiknitter RT @LungCancerFaces: T4: T4: I haven't really taken a break. Have gotten more involved as years go by. Will take a nice long one starting next week. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T4: T4: talk to colleagues and friends about my frustrations...stuff like this chat! 🙂 #LCSM |
| Naomi @ChancesR3 RT @JFreemanDaily: T4: T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T4: T4: Varying length short breaks to do various things. Sometimes just get off social. Sometimes vacay. #lcsm |
| #LCSM Chat @lcsmchat RT @JBordeaux9: T4 Took October away for the most part. Everyone needs a break once in awhile. #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: I take social media breaks, Manet a few days to a week of no FB groups or twitter. I also try to use what I learned from MBSR and meditate. It helps me refocus.That and wine. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @ChancesR3: T4 - no breaks since my husband needs my help more in last 2 of the 5 years since dx. No rest but it’s harder for him. #lcsm |
| #LCSM Chat @lcsmchat RT @ChancesR3: T4 - no breaks since my husband needs my help more in last 2 of the 5 years since dx. No rest but it’s harder for him. #lcsm |
| Anita Figueras @scifiknitter RT @JFreemanDaily: T4: T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| lysa buonanno @lysabee @ChancesR3 being a caregiver is a tough job. you're our unsung heros #lcsm |
| Faces of Lung Cancer @LungCancerFaces @ChancesR3 Yeah, it's tough to take a break from being the primary caregiver. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T4: I must say I've had to back away from social media a bit. Need time to halt the inputs and just process. #lcsm |
| Denise Cutlip @dennycee T4: Conferences recharge me, @LUNGevity @freetobreathe @LABLifeBreath #LCSM |
| #LCSM Chat @lcsmchat RT @lysabee: @ChancesR3 being a caregiver is a tough job. you're our unsung heros #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #NoStigma #lcsm https://t.co/4B1TxZEHFG |
| Bob Steele @steele_bob RT @lysabee: @ChancesR3 being a caregiver is a tough job. you're our unsung heros #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 T4: You can't pour from an empty cup. Take have to take care of yourself before you can take care of others. #LCSM #selfcare #Mindfulness #burnout https://t.co/BzPiUAU7TU |
| These Are My Scars @TheseAreMyScars I take social media breaks, maybe a few days to a week of no FB groups or twitter. I also try to use what I learned from MBSR and meditate. It helps me refocus. That and wine. #lcsm |
| lysa buonanno @lysabee @dennycee @LUNGevity @freetobreathe @LABLifeBreath me too! I'm always motivated when I leave #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @JessicaLuc1: T4: T4: You can't pour from an empty cup. Take have to take care of yourself before you can take care of others. #LCSM #selfcare #Mindfulness #burnout https://t.co/BzPiUAU7TU |
| Bob Steele @steele_bob RT @dennycee: T4: T4: Conferences recharge me, @LUNGevity @freetobreathe @LABLifeBreath #LCSM |
 | CTSurgSocMedNetwork @tssmn RT @TimAllenMDJD: No guilt allowed! Thank you for all you do! #lcsm https://t.co/YmvKnTyULF |
| Janet Freeman-Daily @JFreemanDaily T4: Glad to see so many advocates are practicing self-care--it's sooooo important! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: I must say I've had to back away from social media a bit. Need time to halt the inputs and just process. #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: T4: T4: Conferences recharge me, @LUNGevity @freetobreathe @LABLifeBreath #LCSM |
| Naomi @ChancesR3 @LungCancerFaces I try not to let my clients know. And have to count to 10 sometimes. Lol. #lcsm |
| Anita Figueras @scifiknitter RT @lysabee: @ChancesR3 being a caregiver is a tough job. you're our unsung heros #lcsm |
| Faces of Lung Cancer @LungCancerFaces @dennycee It's been so great to see you at "real life" advocacy events. xo #lcsm |
| Kristy Rogers @LungLove4Mom #lcsm T4 after November I usually slow down through the holidays |
| Bob Steele @steele_bob RT @JFreemanDaily: T4: T4: I must say I've had to back away from social media a bit. Need time to halt the inputs and just process. #lcsm |
| Alicia C. Staley @stales RT @bjork5: T3: T3: never considered quitting. Especially having met so many fellow advocates the past 4 years #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: I take social media breaks, maybe a few days to a week of no FB groups or twitter. I also try to use what I learned from MBSR and meditate. It helps me refocus. That and wine. #lcsm |
| lysa buonanno @lysabee @itsthebunk @afreshchapter ooh I'm going to look into that. #lcsm |
| Flemming Rasmussen @fgrazz T4 - Some in this cohort have day jobs outside of this realm. For me this #cancer advocacy is also my resiliency fm high stress work #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: Glad to see so many advocates are practicing self-care--it's sooooo important! #lcsm |
| Janet Freeman-Daily @JFreemanDaily Last topic T5 is on the way … #lcsm |
| #LCSM Chat @lcsmchat RT @ChancesR3: @LungCancerFaces I try not to let my clients know. And have to count to 10 sometimes. Lol. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T4: T4: Glad to see so many advocates are practicing self-care--it's sooooo important! #lcsm |
| Alicia C. Staley @stales RT @JFreemanDaily: T4: T4: What steps did you take to help recharge advocacy energies? If you take took a break, how long was it and what did you do? #lcsm |
 | RAUL @raulirn RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
| SunshineKK @SunshineKK68 Everyone needs to decide how to split their energies between their own life and the cause #lcsm |
| Naomi @ChancesR3 @KathleenSkambis Thank you! #lcsm |
| lysa buonanno @lysabee T4 @healingodyssey is a great retreat in CA for cancer survivors. went last month=so awesome! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @fgrazz Advocacy is a break FROM high-stress work? Wow! #lcsm |
 | Pamela Samson, MD @samsonpp RT @JTOonline: Third JTO Editor's Choice features work by Feng et al., who describe a patient w/ neurologic immune-related adverse events following therapy w/ PD-1 inhibitor pembrolizumab, and provide an overview of immunologic toxicities w/ checkpoint inhibitors. #LCSM https://t.co/gfP4UjJb0C https://t.co/lDbWjMpMd0 |
| #LCSM Chat @lcsmchat RT @LungLove4Mom: #lcsm T4 after November I usually slow down through the holidays |
| #LCSM Chat @lcsmchat RT @fgrazz: T4 - Some in this cohort have day jobs outside of this realm. For me this #cancer advocacy is also my resiliency fm high stress work #lcsm |
| Bob Steele @steele_bob RT @JFreemanDaily: @fgrazz Advocacy is a break FROM high-stress work? Wow! #lcsm |
| Flemming Rasmussen @fgrazz RT @JFreemanDaily: T4: T4: Glad to see so many advocates are practicing self-care--it's sooooo important! #lcsm |
| Alicia C. Staley @stales @JFreemanDaily T4: I need to learn how to take a break - and step back... So many advocate losses lately, I need to grieve and rest. #LCSM |
| lysa buonanno @lysabee @LungLove4Mom I usually take off nov-feb (except for sm) #lcsm |
| #LCSM Chat @lcsmchat RT @SunshineKK68: Everyone needs to decide how to split their energies between their own life and the cause #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: T4 @healingodyssey is a great retreat in CA for cancer survivors. went last month=so awesome! #lcsm |
| Danielle Pardue @Actorielle RT @stales: @JFreemanDaily T4: @JFreemanDaily T4: I need to learn how to take a break - and step back... So many advocate losses lately, I need to grieve and rest. #LCSM |
| Jessica G.Y. Luc, MD @JessicaLuc1 T4: I exercise, travel, play the piano, trumpet, 3D print, spend time with friends and family, sleep, volunteer, watch plays, movies, sports, meditate #LCSM |
| #LCSM Chat @lcsmchat RT @stales: @JFreemanDaily T4: @JFreemanDaily T4: I need to learn how to take a break - and step back... So many advocate losses lately, I need to grieve and rest. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T4: Learning to say "no" is a good stress reduction strategy. The need is great, and we're only human. #lcsm |
| Danielle Pardue @Actorielle @JFreemanDaily @fgrazz Agree wholeheartedly. Would much rather do this every single day than practice law. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #SayItLoud #lcsm https://t.co/Rckm15hKpt |
| Alicia C. Staley @stales @JFreemanDaily I need to borrow this lesson from you! #lcsm |
| Bob Steele @steele_bob RT @Actorielle: @JFreemanDaily @fgrazz Agree wholeheartedly. Would much rather do this every single day than practice law. #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: @LungLove4Mom I usually take off nov-feb (except for sm) #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: Learning to say "no" is a good stress reduction strategy. The need is great, and we're only human. #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: @JFreemanDaily @fgrazz Agree wholeheartedly. Would much rather do this every single day than practice law. #lcsm |
| Denise Cutlip @dennycee @LungCancerFaces That was an amazing event/effort. #lcsm |
| lysa buonanno @lysabee @JFreemanDaily it took me a while to say no. you have to #lcsm |
| Treatment for Cancer @cancer_tm RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc88h7Jg), science geek, stage IV #lungcancer patient/activist #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: From your experiences in advocacy, what advice would you offer to those considering becoming cancer patient advocates? #lcsm |
| Flemming Rasmussen @fgrazz @JFreemanDaily yes it is...I am working in the most rewarding assignment of my military career, supporting Ill & injured veterans #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: From your experiences in advocacy, what advice would you offer to those considering becoming cancer patient advocates? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #JustSayNo #lcsm https://t.co/OG92anjeK6 |
| Karen Loss @cancertrek T5: Don't try to do everything. Find what you are best at and build your platform. #lcsm |
| Alicia C. Staley @stales MT @JFreemanDaily T5: From your experiences in advocacy, what advice would you offer to those considering becoming cancer advocates? #lcsm |
| lysa buonanno @lysabee T5 what are you good at? pick one aspect at 1st, then branch out. don't spread yourself too thin #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 @JFreemanDaily @fgrazz Absolutely! I think it has to do with a change in environment and goals, to give one a pause and the ability to revisit other things at a later time. #LCSM |
| DaveisAliveAndKickn @AliveAndKicknDD T4 I advocate for genetic testing. I work in genetic testing. Soccer and live music are my therapy #LCSM |
| Bob Steele @steele_bob RT @fgrazz: @JFreemanDaily yes it is...I am working in the most rewarding assignment of my military career, supporting Ill & injured veterans #lcsm |
| diseases_an @diseases_an RT @JFreemanDaily: T1: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at conferences #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @JessicaLuc1: @JFreemanDaily @fgrazz Absolutely! I think it has to do with a change in environment and goals, to give one a pause and the ability to revisit other things at a later time. #LCSM |
 | Ian Pereira @IanJPereira RT @JFreemanDaily: T4: T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| Bob Steele @steele_bob RT @lysabee: T5 what are you good at? pick one aspect at 1st, then branch out. don't spread yourself too thin #lcsm |
| Jim Bordeaux @JBordeaux9 RT @cancertrek: T5: T5: Don't try to do everything. Find what you are best at and build your platform. #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @stales: @JFreemanDaily T4: @JFreemanDaily T4: I need to learn how to take a break - and step back... So many advocate losses lately, I need to grieve and rest. #LCSM |
| Naomi @ChancesR3 @JFreemanDaily T5 - I would tell a new advocate that their energy and advocacy is needed and wanted. And that they help to bring hope and comfort to patients and their families. Huge! There is room for all. #lcsm |
| Karen Loss @cancertrek T5: Be passionate. #lcsm |
| Frank Ingram, MD @Chucktowndoc T5: The louder the voice, the better chance that people/lawmakers will listen. Join us! #LCSM |
| Alicia C. Staley @stales T5: Be realistic. Be gentle with yourself. Keep moving, keep going, be laser focused on what you'd like to do - Specialize! #lcsm |
| Danielle Pardue @Actorielle RT @stales: T5: T5: Be realistic. Be gentle with yourself. Keep moving, keep going, be laser focused on what you'd like to do - Specialize! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T5: T5: From your experiences in advocacy, what advice would you offer to those considering becoming cancer patient advocates? #lcsm |
| Anita Figueras @scifiknitter Could not say it better. #LCSM https://t.co/dPwACb3NXt |
| Kristy Rogers @LungLove4Mom #lcsm t5 understand going in that not everyone you know/love will want to participate or understand the why. Don't let that stop you 💜 |
| Flemming Rasmussen @fgrazz T5 - pick a focus but include complementary aspects of same...we each grow faster and help others grow too by that approach #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T5: T5: From your experiences in advocacy, what advice would you offer to those considering becoming cancer patient advocates? #lcsm |
| Denise Cutlip @dennycee Educate yourself, line up reliable educational resources like GRACE, JCO and other cancer journals #LCSM |
| Bob Steele @steele_bob T5: introduce them to social media groups; start slow; pick things you really like to do for an event rally. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: Choose a type of advocacy work you enjoy and are good at. If you don't enjoy it, you can't keep your energy up. #lcsm |
| These Are My Scars @TheseAreMyScars T5. DO IT!! It is hands down one of the most rewarding and satisfying feeling to help others. It doesn’t have to be a Herculean thing, small actions matter, sometimes the most. It’s hard and frustrating and will make you cry, but do it anyway #lcsm |
| Kathleen Skambis @KathleenSkambis T5: Do what feels right for you. Be prepared for everyone you know to ask you lots of ?s. Try to take nothing personally. Stand tall #lcsm |
| Mara Antonoff, MD, FACS @maraantonoff RT @ChancesR3: @JFreemanDaily T5 - I would tell a new advocate that their energy and advocacy is needed and wanted. And that they help to bring hope and comfort to patients and their families. Huge! There is room for all. #lcsm |
| lysa buonanno @lysabee T5 don't give up. progress can be slow moving but it is happening #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @stales: T5: T5: Be realistic. Be gentle with yourself. Keep moving, keep going, be laser focused on what you'd like to do - Specialize! #lcsm |
| SunshineKK @SunshineKK68 Advocating from the heart is so powerful and so many here have that passion #lcsm |
| Ian Pereira @IanJPereira Back in time for the last bit of #lcsm. Apologies for being late. |
| Anita Figueras @scifiknitter Could not say it better! #LCSM https://t.co/dPwACb3NXt |
| Faces of Lung Cancer @LungCancerFaces T5: Advice: Persistence. I believe it's the key to everything. Passion. You can't be an advocate with out it. Unity. Divided we fall. #lcsm |
| Bob Steele @steele_bob RT @lysabee: T5 don't give up. progress can be slow moving but it is happening #lcsm |
| Danielle Pardue @Actorielle RT @LungCancerFaces: T5: Advice: T5: Advice: Persistence. I believe it's the key to everything. Passion. You can't be an advocate with out it. Unity. Divided we fall. #lcsm |
| Ian Pereira @IanJPereira RT @steele_bob: T5: T5: introduce them to social media groups; start slow; pick things you really like to do for an event rally. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: Write your own "advocacy mission statement." Say no to opportunities that don't fulfill your mission--you can't do everything. #lcsm |
| Jim Bordeaux @JBordeaux9 T5 not just applying what you're good at but also what you're passionate about #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things one can do for #LungCancer patients. #NoStigma #433aday #lcsm #PatientsFirst https://t.co/69926N3VzL |
| #LCSM Chat @lcsmchat RT @cancertrek: T5: T5: Don't try to do everything. Find what you are best at and build your platform. #lcsm |
| #LCSM Chat @lcsmchat RT @AliveAndKicknDD: T4 I advocate for genetic testing. I work in genetic testing. Soccer and live music are my therapy #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @LungCancerFaces: T5: Advice: T5: Advice: Persistence. I believe it's the key to everything. Passion. You can't be an advocate with out it. Unity. Divided we fall. #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 T5: Realize that the goal of advocacy does not arise from a grand vision to rid the world of cancer. Rather, it is an intention to use our knowledge and concern for others to fight such problems, one person at a time. #LCSM |
| #LCSM Chat @lcsmchat RT @lysabee: T5 what are you good at? pick one aspect at 1st, then branch out. don't spread yourself too thin #lcsm |
| Karen Loss @cancertrek T5: Prepare. Gain knowledge. Be confident. Know your audience, whether 1 or 1,000. #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @JessicaLuc1: T5: T5: Realize that the goal of advocacy does not arise from a grand vision to rid the world of cancer. Rather, it is an intention to use our knowledge and concern for others to fight such problems, one person at a time. #LCSM |
| #LCSM Chat @lcsmchat RT @ChancesR3: @JFreemanDaily T5 - I would tell a new advocate that their energy and advocacy is needed and wanted. And that they help to bring hope and comfort to patients and their families. Huge! There is room for all. #lcsm |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T5: T5: The louder the voice, the better chance that people/lawmakers will listen. Join us! #LCSM |
| #LCSM Chat @lcsmchat RT @cancertrek: T5: T5: Be passionate. #lcsm |
| Flemming Rasmussen @fgrazz T5 - Less of jumping on bandwagon and more finding an unsatisfied niche (perceived or real) and running with it #lcsm |
| #LCSM Chat @lcsmchat RT @stales: T5: T5: Be realistic. Be gentle with yourself. Keep moving, keep going, be laser focused on what you'd like to do - Specialize! #lcsm |
| These Are My Scars @TheseAreMyScars T5. Try to find balance and focus. Chose something that you are passionate about. Start small and build. Never give up. #lcsm |
| #LCSM Chat @lcsmchat RT @LungLove4Mom: #lcsm t5 understand going in that not everyone you know/love will want to participate or understand the why. Don't let that stop you 💜 |
| #LCSM Chat @lcsmchat RT @fgrazz: T5 - pick a focus but include complementary aspects of same...we each grow faster and help others grow too by that approach #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: Educate yourself, line up reliable educational resources like GRACE, JCO and other cancer journals #LCSM |
| Mara Antonoff, MD, FACS @maraantonoff RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things one can do for #LungCancer patients. #NoStigma #433aday #lcsm #PatientsFirst https://t.co/69926N3VzL |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: Choose a type of advocacy work you enjoy and are good at. If you don't enjoy it, you can't keep your energy up. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: For each opportunity, ask "Is this the best way FOR ME to make a difference?" We all have different interests and skills. #lcsm |
| #LCSM Chat @lcsmchat RT @steele_bob: T5: T5: introduce them to social media groups; start slow; pick things you really like to do for an event rally. #lcsm |
| Bob Steele @steele_bob RT @cancertrek: T5: T5: Prepare. Gain knowledge. Be confident. Know your audience, whether 1 or 1,000. #lcsm |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: T5. DO IT!! It is hands down one of the most rewarding and satisfying feeling to help others. It doesn’t have to be a Herculean thing, small actions matter, sometimes the most. It’s hard and frustrating and will make you cry, but do it anyway #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T5: T5: Do what feels right for you. Be prepared for everyone you know to ask you lots of ?s. Try to take nothing personally. Stand tall #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: T5 don't give up. progress can be slow moving but it is happening #lcsm |
| Naomi @ChancesR3 RT @cancertrek: T5: T5: Prepare. Gain knowledge. Be confident. Know your audience, whether 1 or 1,000. #lcsm |
| Flemming Rasmussen @fgrazz RT @LungCancerFaces: T5: Advice: T5: Advice: Persistence. I believe it's the key to everything. Passion. You can't be an advocate with out it. Unity. Divided we fall. #lcsm |
| #LCSM Chat @lcsmchat RT @SunshineKK68: Advocating from the heart is so powerful and so many here have that passion #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T5: Advice: T5: Advice: Persistence. I believe it's the key to everything. Passion. You can't be an advocate with out it. Unity. Divided we fall. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #WalkingTall #lcsm https://t.co/zwTZFJHVYb |
| Bob Steele @steele_bob RT @cancertrek: T5: T5: Be passionate. #lcsm |
| CTSurgSocMedNetwork @tssmn RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things one can do for #LungCancer patients. #NoStigma #433aday #lcsm #PatientsFirst https://t.co/69926N3VzL |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T5: T5: For each opportunity, ask "Is this the best way FOR ME to make a difference?" We all have different interests and skills. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T5: T5: For each opportunity, ask "Is this the best way FOR ME to make a difference?" We all have different interests and skills. #lcsm |
| Anita Figueras @scifiknitter RT @JFreemanDaily: T5: T5: Write your own "advocacy mission statement." Say no to opportunities that don't fulfill your mission--you can't do everything. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @TheseAreMyScars: T5. Try to find balance and focus. Chose something that you are passionate about. Start small and build. Never give up. #lcsm |
| SunshineKK @SunshineKK68 The key for all is making a positive difference #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: Write your own "advocacy mission statement." Say no to opportunities that don't fulfill your mission--you can't do everything. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @cancertrek: T5: T5: Prepare. Gain knowledge. Be confident. Know your audience, whether 1 or 1,000. #lcsm |
| #LCSM Chat @lcsmchat RT @JBordeaux9: T5 not just applying what you're good at but also what you're passionate about #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things one can do for #LungCancer patients. #NoStigma #433aday #lcsm #PatientsFirst https://t.co/69926N3VzL |
| Janet Freeman-Daily @JFreemanDaily T5: Find the kernel of truth in your #cancer story, and build on it. Was it early detection? Tumor testing? Getting 2nd opinion? #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T5: T5: Prepare. Gain knowledge. Be confident. Know your audience, whether 1 or 1,000. #lcsm |
| Bob Steele @steele_bob RT @Chucktowndoc: T5: T5: The louder the voice, the better chance that people/lawmakers will listen. Join us! #LCSM |
| diseases_an @diseases_an RT @NCICancerStats: It’s #LungCancer Awareness Month! Lung cancer is the number one leading cause of cancer death in the US: It’s #LungCancer Awareness Month! Lung cancer is the number one leading cause of cancer death in the US: https://t.co/MnrkjfdC6A #LCSM |
| #LCSM Chat @lcsmchat RT @fgrazz: T5 - Less of jumping on bandwagon and more finding an unsatisfied niche (perceived or real) and running with it #lcsm |
| john @JohnLPender 'night all. 'til next time. #lcsm |
| Frank Ingram, MD @Chucktowndoc T5: Remember why you’re here. #PatientsFirst #BetterTreatments #Prevention #LCSM |
| Ian Pereira @IanJPereira @JFreemanDaily From limited experience, perhaps consider joining a decision-making body as a cancer care advocate (eg @CancerCare_ON @HQOntario)? #lcsm T5 |
| #LCSM Chat @lcsmchat RT @TheseAreMyScars: T5. Try to find balance and focus. Chose something that you are passionate about. Start small and build. Never give up. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: For each opportunity, ask "Is this the best way FOR ME to make a difference?" We all have different interests and skills. #lcsm |
| Kathleen Skambis @KathleenSkambis GTG. Great chat. Love you guys. Thank you!! #lcsm |
| Bob Steele @steele_bob RT @dennycee: Educate yourself, line up reliable educational resources like GRACE, JCO and other cancer journals #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T5: T5: Find the kernel of truth in your #cancer story, and build on it. Was it early detection? Tumor testing? Getting 2nd opinion? #lcsm |
| #LCSM Chat @lcsmchat RT @SunshineKK68: The key for all is making a positive difference #lcsm |
| Janet Freeman-Daily @JFreemanDaily We’re in our final minutes - closing thoughts? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: Find the kernel of truth in your #cancer story, and build on it. Was it early detection? Tumor testing? Getting 2nd opinion? #lcsm |
| Jessica G.Y. Luc, MD @JessicaLuc1 T5: You are only ever as good as the team you belong to. Grand achievements demand more than any one person can deliver. It takes a village. #LCSM |
| lysa buonanno @lysabee @JFreemanDaily true. I've been asked to speak at certain events and I've asked "are you sure you want me to do it?" #lcsm |
| These Are My Scars @TheseAreMyScars RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things one can do for #LungCancer patients. #NoStigma #433aday #lcsm #PatientsFirst https://t.co/69926N3VzL |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T5: T5: Remember why you’re here. #PatientsFirst #BetterTreatments #Prevention #LCSM |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @JessicaLuc1: T5: T5: You are only ever as good as the team you belong to. Grand achievements demand more than any one person can deliver. It takes a village. #LCSM |
| Bob Steele @steele_bob RT @SunshineKK68: Advocating from the heart is so powerful and so many here have that passion #lcsm |
| Flemming Rasmussen @fgrazz @SunshineKK68 yes...having others feel or sharing our spark is the only manner I have seen that moves new paths #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #LikeABoss #lcsm https://t.co/Q0Gn9YDNhy |
| Jessica G.Y. Luc, MD @JessicaLuc1 RT @Chucktowndoc: T5: T5: Remember why you’re here. #PatientsFirst #BetterTreatments #Prevention #LCSM |
| Denise Cutlip @dennycee T5: can’t know everything develop contacts who’ve special knowledge ie: ROS1ders, EGFR advocates, don’t be afraid to say I don’t know but I’ll find you an answer #LCSM |
| Ian Pereira @IanJPereira @JFreemanDaily @CancerCare_ON @HQOntario Consider structured experiences that value your time, believe in equity/transparency, & provide opportunities for impact? #lcsm t5 |
| Bob Steele @steele_bob RT @JFreemanDaily: T5: T5: For each opportunity, ask "Is this the best way FOR ME to make a difference?" We all have different interests and skills. #lcsm |
| Naomi @ChancesR3 T5 - I would also add that it’s important for advocates to keep telling the stories of all of us - people need to keep hearing our stories so they will see anyone with lungs can get LC #lcsm |
| Karen Loss @cancertrek My final thought...hope everyone has a wonderful Thanksgiving. Be grateful for so much that is good in our lives. #lcsm |
| These Are My Scars @TheseAreMyScars #workingonit! https://t.co/wsFU4asJFW |
| Janet Freeman-Daily @JFreemanDaily CT: Advocacy is a calling. Do it because you're passionate. Do what you know. Keep your own energies up. Know when to let it go. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Wisdom #lcsm https://t.co/626GsJx5m0 |
| Faces of Lung Cancer @LungCancerFaces Closing thought: I'm honored to know each and every one of you. It's a privilege. I hope you all have a happy Thanksgiving. #lcsm |
| lysa buonanno @lysabee thank you. great topic that we all seem to experience. you guys same me $$ on therapy ;) #lcsm |
| SunshineKK @SunshineKK68 So many here give so much and all of us appreciate and need your efforts #lcsm |
| Danielle Pardue @Actorielle RT @LungCancerFaces: Closing thought: Closing thought: I'm honored to know each and every one of you. It's a privilege. I hope you all have a happy Thanksgiving. #lcsm |
| Danielle Pardue @Actorielle @LungCancerFaces DITTO!!! #lcsm |
| lysa buonanno @lysabee happy thanksgiving #lcsm |
| Danielle Pardue @Actorielle Thank you all so much!!! Thank you @JFreemanDaily and thank you #lcsm chat! |
| Ian Pereira @IanJPereira RT @JFreemanDaily: T5: T5: From your experiences in advocacy, what advice would you offer to those considering becoming cancer patient advocates? #lcsm |
| Flemming Rasmussen @fgrazz A super chat..thanks to all, especially @JFreemanDaily for the lead #lcsm |
| Upstage Lung Cancer @UpstageLungCanc thank-you, as always, for an inspiring chat! #lcsm |
| Geri Massa @GeriGerim13 Thank you for a great chat #lcsm https://t.co/FicjRlStXY |
| Janet Freeman-Daily @JFreemanDaily RT @ChancesR3: @JFreemanDaily T5 - I would tell a new advocate that their energy and advocacy is needed and wanted. And that they help to bring hope and comfort to patients and their families. Huge! There is room for all. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD It is, after all, #JustMolecularChanges #lcsm #NoStigma #NoStigma #NoStigma #PatientsFirst https://t.co/mZY0KBt4h8 |
| colleen ziegler @ZieglerColleen #lcsm Thank you! Everyone have a great Thanksgiving |
| Flemming Rasmussen @fgrazz @LungCancerFaces Thanksgiving was last month ;<)...those silly 🇨🇦 #lcsm |
| Frank Ingram, MD @Chucktowndoc Thank you all for all the hard work you do. You are valued. #LCSM |
| Ian Pereira @IanJPereira RT @JFreemanDaily: CT: CT: Advocacy is a calling. Do it because you're passionate. Do what you know. Keep your own energies up. Know when to let it go. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Tonight’s #LCSM Chat transcript "Running on Empty—Advocacy and Burnout” is at https://t.co/HM48Ss08aD |
| Jessica G.Y. Luc, MD @JessicaLuc1 Great #LCSM chat! Thank you for hosting @JFreemanDaily and for everyone's input. |
| Faces of Lung Cancer @LungCancerFaces Thanks to @JFreemanDaily for moderating tonight. Our paths would never have crossed without LC advocacy. Silver linings... #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD It has been a privilege to participate. #lcsm https://t.co/KtpFwpdZpQ |
| Ian Pereira @IanJPereira @JFreemanDaily Great point. Is there a place for professional advocates? #lcsm |
| Jim Bordeaux @JBordeaux9 Thank you for allowing me to participate I haven't been here for a while so it's good to be back. #lcsm |
| #LCSM Chat @lcsmchat RT @IanJPereira: @JFreemanDaily @CancerCare_ON @HQOntario Consider structured experiences that value your time, believe in equity/transparency, & provide opportunities for impact? #lcsm t5 |
| Kristy Rogers @LungLove4Mom #lcsm thankful for the great group of people working hard everyday to raise awareness for #lungcancer 💜to all |
| #LCSM Chat @lcsmchat RT @ChancesR3: T5 - I would also add that it’s important for advocates to keep telling the stories of all of us - people need to keep hearing our stories so they will see anyone with lungs can get LC #lcsm |
 | Dr. Karen Wickersham @wickster55 RT @LungCancerFaces: T2: T2: Media not covering us. Stigma still a huge issue. Lack of unity among the various lung cancer groups around a core issue(s). #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: My final thought...hope everyone has a wonderful Thanksgiving. Be grateful for so much that is good in our lives. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: CT: CT: Advocacy is a calling. Do it because you're passionate. Do what you know. Keep your own energies up. Know when to let it go. #lcsm |
| Anita Figueras @scifiknitter CT Thank you for being here. Happy Thanksgiving! #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Closing thought: Closing thought: I'm honored to know each and every one of you. It's a privilege. I hope you all have a happy Thanksgiving. #lcsm |
| Naomi @ChancesR3 @TimAllenMDJD Yes / love the pathologist view you always bring with compassion and clarity! #lcsm #science |
| #LCSM Chat @lcsmchat RT @dennycee: T5: can’t know everything develop contacts who’ve special knowledge ie: T5: can’t know everything develop contacts who’ve special knowledge ie: ROS1ders, EGFR advocates, don’t be afraid to say I don’t know but I’ll find you an answer #LCSM |
| Bob Steele @steele_bob Another helpful, inspiring Lung Cancer Social Media chat session. Thanks all... Happy Thanksgiving. C U next time. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: It is, after all, #JustMolecularChanges #lcsm #NoStigma #NoStigma #NoStigma #PatientsFirst https://t.co/mZY0KBt4h8 |
| Janet Freeman-Daily @JFreemanDaily @pattypoolqueen1 You MUST include the #LCSM hashtag in your tweets for them to appear in the #LCSM Chat feed. No space between # and LCSM. |
| #LCSM Chat @lcsmchat RT @fgrazz: @LungCancerFaces Thanksgiving was last month ;<)...those silly 🇨🇦 #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Thanks to @JFreemanDaily for moderating tonight. Our paths would never have crossed without LC advocacy. Silver linings... #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: It has been a privilege to participate. #lcsm https://t.co/KtpFwpdZpQ |
| #LCSM Chat @lcsmchat RT @JBordeaux9: Thank you for allowing me to participate I haven't been here for a while so it's good to be back. #lcsm |
| Naomi @ChancesR3 RT @GeriGerim13: Thank you for a great chat #lcsm https://t.co/FicjRlStXY |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @pattypoolqueen1 You MUST include the #LCSM hashtag in your tweets for them to appear in the #LCSM Chat feed. No space between # and LCSM. |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Tonight’s #LCSM Chat transcript "Running on Empty—Advocacy and Burnout” is at https://t.co/HM48Ss08aD |
| Denise Cutlip @dennycee Happy and healthy Thanksgiving to an amazing group of people. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you. I am humbled to be part of this great #lcsm team. https://t.co/eDzSQUsET2 |
| Janet Freeman-Daily @JFreemanDaily @pattypoolqueen1 Really glad you joined us tonight! If you repost the tweets that did not not post (making sure to include #LCSM in the tweet), they WILL appear in the transcript. |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/TcSeGM4ZVh |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/df5nqGAbLo |
| Denise Cutlip @dennycee @IanJPereira @JFreemanDaily Can become certified as a Patient Navigator #lcsm |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/dmXG66rycA |
| Naomi @ChancesR3 @TimAllenMDJD We really appreciate your perspective. And wit. 😊#lcsm |
| Bob Steele @steele_bob RT @TimAllenMDJD: Thank you. I am humbled to be part of this great #lcsm team. https://t.co/eDzSQUsET2 |
| These Are My Scars @TheseAreMyScars CT. I am so greatful to be a part of such a wonderful, supporting and passionate community. We are making a difference. Love you all. Be well. 💕 #lcsm |
 | Denise Kerson @dkerson1399 RT @Chucktowndoc: T5: T5: The louder the voice, the better chance that people/lawmakers will listen. Join us! #LCSM |
| Bob Steele @steele_bob Time for Delsym & Codeine lol #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things one can do for #LungCancer patients. #NoStigma #433aday #lcsm #PatientsFirst https://t.co/69926N3VzL |
| Janet Freeman-Daily @JFreemanDaily RT @LungCancerFaces: Thanks to @JFreemanDaily for moderating tonight. Our paths would never have crossed without LC advocacy. Silver linings... #lcsm |
| Janet Freeman-Daily @JFreemanDaily @IanJPereira I don't know many people who can successfully make a living as #cancer patient advocates, but there are groups where advocates gather. Try Society for Participatory Medicine (@S4PM) #LCSM |
| Alicia C. Staley @stales RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things one can do for #LungCancer patients. #NoStigma #433aday #lcsm #PatientsFirst https://t.co/69926N3VzL |
| Janet Freeman-Daily @JFreemanDaily RT @dennycee: @IanJPereira @JFreemanDaily Can become certified as a Patient Navigator #lcsm |
| Alicia C. Staley @stales Thanks to @JFreemanDaily for moderating tonight. And letting me drop in #lcsm |
| Janet Freeman-Daily @JFreemanDaily @stales Glad our patient advocate siblings @stales and @itsthebunk joined #LCSM Chat tonight! Hugs! |
 | Bob Tufts @TuftsB RT @JFreemanDaily: CT: CT: Advocacy is a calling. Do it because you're passionate. Do what you know. Keep your own energies up. Know when to let it go. #lcsm |
| Alicia C. Staley @stales @JFreemanDaily @itsthebunk Big hugs to you! Thanks for all you do #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you. The magic is in getting everybody's perspective. #lcsm #DreamTeam https://t.co/eC1WGkwFIy |
| Sarah Jeffords @sarahkilgore23 @JohnLPender Small cell-no mutations #lcsm |
| Ian Pereira @IanJPereira @TimAllenMDJD CT: I sometimes think of advocacy like investing time in a startup - look for equity for a possible outcome I'm passionate about. #lcsm t5 |
 | Sara MacRae @rosamyst I did have a cough and it still went undiagnosed for 2+ years. Keep pursuing a diagnosis if it doesn’t get better. https://t.co/GgFpWIbawl |
| Ian Pereira @IanJPereira Thanks #LCSM for your insight. Have a great night. |
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