#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | NCI Cancer Stats @NCICancerStats It’s #LungCancer Awareness Month! Lung cancer is the number one leading cause of cancer death in the US: https://t.co/MnrkjfdC6A #LCSM |
| @JohnLPender @JFreemanDaily Neither does https://t.co/mOUqct6Csc #lcsm | |
 | National Cancer Institute @theNCI Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHDzx #lcsm https://t.co/RzJlC4u4Z3 |
| @ Looking forward to tonight’s chat 😊 #lcsm | |
 | Danielle Pardue @Actorielle RT @NCICancerStats: It’s #LungCancer Awareness Month! Lung cancer is the number one leading cause of cancer death in the US: https://t.co/M… |
| @LungCancerFaces @GeriGerim13 Hey, Geri. How are you? #lcsm | |
 | Janet Freeman-Daily @JFreemanDaily Welcome to #LCSM Chat! Tonight’s topic: "Running on Empty—Advocacy and Burnout.” Background and questions are on the #LCSM Chat blog https://t.co/weOZy8OTHK |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight’s topic: "Running on Empty—Advocacy and Burnout.” Background and questions are on the #LC… |
| Danielle Pardue @Actorielle Hey, my friends! Danielle here, full-time CG and advocate. NC. Happy LCAM! Love! #lcsm |
| Janet Freeman-Daily @JFreemanDaily This is the first-ever #LCSM Chat in which we can tweet with 280 characters! No more need for cryptic medical abbreviations or multi-tweet sentences, right? |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight’s topic: "Running on Empty—Advocacy and Burnout.” Background and questions are on the #LC… |
 | colleen ziegler @ZieglerColleen #lcsm Hi Colleen from Rochester joining |
| @LungCancerFaces @Actorielle Hey, you! How's married life treating you? #lcsm | |
 | Bob Steele @steele_bob Hello folks! Bob here in Greensboro, NC. #lcsm |
 | Pub Health Monitor @monitor_PH RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHD… |
| @LungCancerFaces @ZieglerColleen Hi, Colleen! Are you feeling any better? I sure hope so. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily Happy #LungCancerAwarenessMonth (#LCAM) to everyone! #lcsm |
| @LungCancerFaces @drCarterHarris Welcome! Glad you're here. #lcsm | |
 | Naomi @ChancesR3 Naomi here - glad to be able@to join the chat tonight after a long day w/hubby for clinical trial. #lcsm |
| @LungCancerFaces @steele_bob Hi Bob! We're going to fatten you up over the next couple of months. #lcsm | |
| @ Good evening y’all Geri here in Louisiana #LCSM | |
| @LungCancerFaces @ChancesR3 Yay! I was just thinking about you. Wondering how it's going with the clinical trial. xo #lcsm | |
| Janet Freeman-Daily @JFreemanDaily We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
 | Jorge Luis Lopez Esq @lopezgovlaw RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHD… |
 | Karen Loss @cancertrek Hi all. I'm here, at least for a bit. Kind of hungry though. Haven't had supper yet. #lcsm |
| @LungCancerFaces [REDACTED USER] Thanks for joining us this evening. #lcsm | |
 | Frank Ingram, MD @Chucktowndoc Ingram here. Community pathologist in the Queen City (Charlotte, NC) #LCSM |
 | Dave Bjork @bjork5 Hi all! Dave here in Boston #lcsm #LCAM |
| @ @LungCancerFaces #lcsm glad to be here, how are you? | |
| @LungCancerFaces @cancertrek Hey, Karen! Congrats on your now 3x Cy Young Award winner. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily @cancertrek I haven't eaten either (if you don't count the quickly-shrinking tube of Ritz crackers next to me) #lcsm |
| @LungCancerFaces @Chucktowndoc Welcome! Thanks for joining us. #lcsm | |
 | SOTS @sparkyontheseas Checking in. Hello all!!! #lcsm |
 | Alicia C. Staley @stales Hi everyone! #lcsm |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc88h7Jg), science geek, stage IV #lungcancer patient/activist #lcsm |
| @LungCancerFaces @bjork5 Hi, Dave! How are you? #lcsm | |
| Janet Freeman-Daily @JFreemanDaily @stales Nice to see #BCSM join the chat! #lcsm |
| @LungCancerFaces @sparkyontheseas Hey, stranger! Hope you're doing OK. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb |
| Dave Bjork @bjork5 @stales Hey there! #LCSM |
| Alicia C. Staley @stales @JFreemanDaily thanks, important topic tonight! #lcsm |
| @LungCancerFaces @stales Hello #bcsm rock star!! #lcsm | |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Alicia C. Staley @stales @bjork5 Hey there! How are you? #lcsm |
| @LungCancerFaces [REDACTED USER] Hello! Good to see you tonight. #lcsm | |
| Naomi @ChancesR3 @LungCancerFaces It’s interesting! 7 days of AZ6738 and then immunotherapy infusion. Then 20 days of nothing. Then cycle again. Immunotherapy for EGFR - fingers and toes crossed! #lcsm |
| Alicia C. Staley @stales @LungCancerFaces hi #LCSM rockstars!!! |
| Alicia C. Staley @stales RT @JFreemanDaily If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/n26HZ6ijK8 |
 | Sarah Jeffords @sarahkilgore23 #lcsm diagnosed at https://t.co/ENRVycDudR in Georgia |
| @ #LCSM https://t.co/KiCHPne2FE | |
| @LungCancerFaces Deana Hendrickson in Los Angeles here. Important topic tonight. #lcsm | |
| Dave Bjork @bjork5 @LungCancerFaces Hey Deana! It's all good. So great to meet you in DC #LCSM |
| @LungCancerFaces @sarahkilgore23 Hey, Sarah! I'm so glad you're here with us tonight. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm |
 | lysa buonanno @lysabee #lcsm hi from Vegas |
| @JohnLPender @sarahkilgore23 I'm in Georgia too. Diagnosed at 37. #lcsm | |
| @LungCancerFaces @bjork5 It was great. Still can't get over how tall you are! #lcsm | |
 | SunshineKK @SunshineKK68 #LCSM |
| Janet Freeman-Daily @JFreemanDaily I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #lcsm |
 | Kristy Rogers @LungLove4Mom #lcsm hi everyone :) |
| @LungCancerFaces [REDACTED USER] Hey! Reading that book tonight. Never had a chance during my whirlwind DC trip. #lcsm | |
| @LungCancerFaces @lysabee Hi Lysa! #lcsm | |
 | Mona Perl @Mperl RT @susila55: #433aday US lives lost 2 #LungCancer. Now, this is a #NationalEmergency! Not my son! Help me stop the epidemic! #LCSM #LCAM17… |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here #lcsm https://t.co/vwJPnkQfLZ |
| @LungCancerFaces @SunshineKK68 Welcome. Thanks for joining in. #lcsm | |
| Alicia C. Staley @stales Alicia - co-founder of #BCSM - joining in for this important chat on the #LCSM channel :-) 3x cancer survivor (Hodgkins and BC) |
| Dave Bjork @bjork5 @LungCancerFaces Haha my 3 boys are all 6'5" -3 inches taller me 😂 #LCSM |
 | Kathleen Skambis @KathleenSkambis #lcsm Kathleen here in Florida. Sporadically. Nursing husband home after knee replacement surgery this morning. |
| @LungCancerFaces @TimAllenMDJD Now we can get this party started. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily Glad to see familiar Twitter handles as well as new participants tonight! Did anyone attend #433aday Life and Breath Rally 11/2? #lcsm |
| @LungCancerFaces @KathleenSkambis Knee replacement is a tough one. Best hopes that he heals quickly. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily We’ll start with Topic T1 in a minute … #lcsm |
| @LungCancerFaces @LungLove4Mom Hi Kristy! #lcsm | |
| Karen Loss @cancertrek I was at #433aday rally. #lcsm |
| @JohnLPender @JFreemanDaily Not that I could have gone, but I didn't know about it until 11/1. #lcsm | |
| @LungCancerFaces [REDACTED USER] Welcome. Thanks for joining us. #lcsm | |
| colleen ziegler @ZieglerColleen #lcsm I was there |
| Janet Freeman-Daily @JFreemanDaily Note: for purposes of this chat, "cancer patient advocate" can be ANYONE who advocates for cancer patients (including docs) #lcsm |
| @LungCancerFaces @JohnLPender @JFreemanDaily Don't worry. We're doing another one next year. Stay tuned. #lcsm | |
| Bob Steele @steele_bob RT @stales: Alicia - co-founder of #BCSM - joining in for this important chat on the #LCSM channel :-) 3x cancer survivor (Hodgkins and BC) |
| Janet Freeman-Daily @JFreemanDaily T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @itsthebunk Hey Liza! Welcome! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Glad to see familiar Twitter handles as well as new participants tonight! Did anyone attend #433aday Life and Breath Ral… |
| @LungCancerFaces @itsthebunk Hi Liza! #lcsm | |
| Alicia C. Staley @stales RT @JFreemanDaily: T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
 | Tessa Sheldon @tessa_perrin Tessa here. Helping with my mama, dx ext stage small cell a year ago. #lcsm |
 | Upstage Lung Cancer @UpstageLungCanc Good evening, friends! Always an honor to be here! #lcsm |
| @LungCancerFaces I can't wait for the next #433aday Life and Breath Rally. What a great experience! #lcsm | |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
| @LungCancerFaces @tessa_perrin Hi Tessa! #lcsm | |
| @LungCancerFaces @UpstageLungCanc Welcome! #lcsm | |
| Janet Freeman-Daily @JFreemanDaily T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at conferences #lcsm |
| Karen Loss @cancertrek T1: My main focus is awareness and education. I do speaking engagements, write blog columns occasionally, and do 1 on 1 constantly. #lcsm |
| Tessa Sheldon @tessa_perrin @LungCancerFaces Hey there! #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #lcsm |
| #LCSM Chat @lcsmchat RT @stales: RT @JFreemanDaily If this is your first #LCSM Chat, you might find our primer on how to participate helpful https://t.co/n26HZ6… |
| Karen Loss @cancertrek Been doing patient advocacy for about 4 years of my 5 year lung cancer experience. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them |
| Naomi @ChancesR3 T1 - I advocate for my hubby since stage 4 dx 2012. Last 2 years more care needed but we try to learn all we can as 2 research & educate others that u just need lungs to get LC. #lcsm |
| Dave Bjork @bjork5 @JFreemanDaily T1: I raise money & awareness of the need for cancer research funding for researchers like @WhetstineLab #LCSM |
| Kathleen Skambis @KathleenSkambis #lcsm 18 yr bilateral lung ca survivor. Work with @lungforce and @LungAssociation and generally advocate for awareness and research $$ |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
| Danielle Pardue @Actorielle @tessa_perrin hey my friend! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: I guess I started "advocating" when I started writing my blog in April 2012. Got really active in 2013 w/#LCSM. #lcsm |
| @NCIResearchCtr RT @theNCI: Lung cancer is the leading cause of death from cancer in the U.S. Our information on the disease is here: https://t.co/kKwjShHD… | |
| Kristy Rogers @LungLove4Mom #lcsm I helped start the #lunglovewalk 5k in Houston along with other awesome people and @LCAorg We just had our 4th walk on Nov. 5th :) |
| @diseases_an RT @susila55: #433aday #NationalEmergency #Lungcancer knows no age. It is brutal. It is the #1 #cancer killer. Help spread the word. #Resea… | |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at… |
| Bob Steele @steele_bob T1: My dad passed at 58 from LC. Wife & I became active advocates in 2007 w/ Lung Cancer Initiative of NC. #lcsm |
 | Anita Figueras @scifiknitter Anita here - late due to newbie chemo brain, and dealing with burnout and clinical trial PTSD. Everything is easier when you feel halfway decent. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm |
| @LungCancerFaces RT @JFreemanDaily: T1: What do you do as a cancer patient advocate, and how long have you been doing it? #lcsm | |
| Alicia C. Staley @stales T1: Started in 2008 when I joined twitter to connect w/ other patients to learn more. Went into overdrive when #bcsm launched in 2011 #lcsm |
| Janet Freeman-Daily @JFreemanDaily Note: those of you using tchat.io or tweetchat may need to readTwitter feed to see the tweets that are longer than 140 characters #lcsm |
| Karen Loss @cancertrek T1: I update a Facebook page with current LC news and human interest several times a week. #lcsm |
| Alicia C. Staley @stales RT @JFreemanDaily: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD I tweet, talk, and educate residents, colleagues, administrators, payers, and policymakers. Lung cancer is the number 1 cancer killer. #lcsm #NoStigma #hope https://t.co/DiZva4iarv |
| Karen Loss @cancertrek T1: I continue to educate a homegrown "update" list a couple of times a month with personalized lung cancer info. Hundreds strong. #lcsm |
| Kathleen Skambis @KathleenSkambis #lcsm T1: started activism 2007. Been to the Hill. Spread word social media and will talk to any group anywhere. Have spoken various locs |
| Janet Freeman-Daily @JFreemanDaily Wow, we have a lot of long-time advocates joining us tonight! Thank you for your service to others. #lcsm |
| @LungCancerFaces T1: I've been at it since the end of 2012. Discovered Twitter while spending weeks in hospital with mom. #lcsm | |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at… |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Wow, we have a lot of long-time advocates joining us tonight! Thank you for your service to others. #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: Been doing patient advocacy for about 4 years of my 5 year lung cancer experience. #lcsm |
| Bob Steele @steele_bob T1: Wife/I both diagnosed w/cancer in 2013 (breast, melanoma) but have continued LC advocacy. Far-greater need for fund raising. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: I guess I started "advocating" when I started writing my blog in April 2012. Got really active in 2013 w/#LCSM. #lcsm |
| #LCSM Chat @lcsmchat RT @LungLove4Mom: #lcsm I helped start the #lunglovewalk 5k in Houston along with other awesome people and @LCAorg We just had our 4th wal… |
| Anita Figueras @scifiknitter @ChancesR3 @LungCancerFaces 🤞🤞🤞🤞for Corky! #LCSM |
| #LCSM Chat @lcsmchat RT @steele_bob: T1: My dad passed at 58 from LC. Wife & I became active advocates in 2007 w/ Lung Cancer Initiative of NC. #lcsm |
| Danielle Pardue @Actorielle RT @steele_bob: T1: Wife/I both diagnosed w/cancer in 2013 (breast, melanoma) but have continued LC advocacy. Far-greater need for fund rai… |
| #LCSM Chat @lcsmchat RT @stales: T1: Started in 2008 when I joined twitter to connect w/ other patients to learn more. Went into overdrive when #bcsm launched… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Note: those of you using tchat.io or tweetchat may need to readTwitter feed to see the tweets that are longer than 140 c… |
| Janet Freeman-Daily @JFreemanDaily T1: Patient advocates do more than just writing, speaking, or fundraising. You might work with newly-dx patients and families. #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T1: I update a Facebook page with current LC news and human interest several times a week. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: I tweet, talk, and educate residents, colleagues, administrators, payers, and policymakers. Lung cancer is the number 1 c… |
| #LCSM Chat @lcsmchat RT @cancertrek: T1: I continue to educate a homegrown "update" list a couple of times a month with personalized lung cancer info. Hundreds… |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: #lcsm T1: started activism 2007. Been to the Hill. Spread word social media and will talk to any group anywhere. Have… |
| Janet Freeman-Daily @JFreemanDaily Topic T2 is coming up … #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Wow, we have a lot of long-time advocates joining us tonight! Thank you for your service to others. #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T1: I've been at it since the end of 2012. Discovered Twitter while spending weeks in hospital with mom. #lcsm |
| Naomi @ChancesR3 @scifiknitter @LungCancerFaces How are you my friend? #lcsm |
| #LCSM Chat @lcsmchat RT @steele_bob: T1: Wife/I both diagnosed w/cancer in 2013 (breast, melanoma) but have continued LC advocacy. Far-greater need for fund rai… |
| Danielle Pardue @Actorielle T1 I try to give fellow caregivers a safe space to vent, and a sense of fellowship #lcsm |
| Karen Loss @cancertrek T1: Also, I've done fundraising for some of the non-profits for 4 years running. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @JackWestMD Glad you were able to join us! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: What events/situations in your advocacy work have caused you the most stress and/or distress? How do you cope in real time? #lcsm |
| @LungCancerFaces @JFreemanDaily @JackWestMD And very glad for https://t.co/8I9tue5ZBf. I support it with my Amazon Smile purchases. #lcsm | |
| Tessa Sheldon @tessa_perrin I've been "advocating" since I looked up lung cancer stats online the night mama was dx...and nearly fainted when I saw what dr. Google has to say. #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: T1 I try to give fellow caregivers a safe space to vent, and a sense of fellowship #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T1: Also, I've done fundraising for some of the non-profits for 4 years running. #lcsm |
| Karen Loss @cancertrek T2: The difficulty with getting media coverage has been an ongoing frustration for me. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #LivinOnTheEdge #lcsm #140orFight https://t.co/EnmXqrNamZ |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: @JFreemanDaily @JackWestMD And very glad for https://t.co/8I9tue5ZBf. I support it with my Amazon Smile purchases. #lc… |
| Janet Freeman-Daily @JFreemanDaily T2: As we discussed in a previous chat, loss of fellow patients is a blow to my advocacy energies. #lcsm |
| Dave Bjork @bjork5 @itsthebunk @LungCancerFaces Hey there Liza #LCSM 😎 |
| Naomi @ChancesR3 @cancertrek @lcsmchat Same here! #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T2: What events/situations in your advocacy work have caused you the most stress and/or distress? How do you cope in rea… |
| Frank Ingram, MD @Chucktowndoc T1: Since 2007. I speak to local patient support groups about cancer pathology. Trying to play a bigger role...made my first visit to the state capitol to speak with legislators this year. #LCSM |
| Tessa Sheldon @tessa_perrin T2: the most frustrating thing is the smoking stigma. Hands down. When people ask if she smoked I just reply "Does it matter????" #lcsm |
| @LungCancerFaces T2: Media not covering us. Stigma still a huge issue. Lack of unity among the various lung cancer groups around a core issue(s). #lcsm | |
| Janet Freeman-Daily @JFreemanDaily T2: I also find it tough to be the target of anger from patients/carers who are hurting. I understand, but it stings. #lcsm |
| Anita Figueras @scifiknitter T1. I mostly aggregate and share info. Have done some public speaking for ALA and advocated on Capital Hill twice this year. Big effort right now is startup of @EGFRResisters with 6 other advocates. #lcsm |
 | Lung Cancer Sux @LungCancerSux RT @LungCancerFaces: @JFreemanDaily @JackWestMD And very glad for https://t.co/8I9tue5ZBf. I support it with my Amazon Smile purchases. #lc… |
| Danielle Pardue @Actorielle T2: This is odd,but: folks who still buy in 100% to the smoking stigma OR big pharma conspiracies have stopped me talking mid-sentence #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD This #WhyDoYouGoToWork? #lcsm https://t.co/myMoG5uOSd |
| @JohnLPender T2 The fact that no one in the world seems to care. #lcsm | |
| @LungCancerFaces T2: Losing our friends. Seems to come in bunches. Very tough sometimes. That's why we have to keep on keeping on. For them. #lcsm | |
| Danielle Pardue @Actorielle RT @tessa_perrin: T2: the most frustrating thing is the smoking stigma. Hands down. When people ask if she smoked I just reply "Does it mat… |
| Alicia C. Staley @stales MT @JFreemanDaily T2: What events/situations in your advocacy work have caused most stress and/or distress? How do you cope? #lcsm |
| @LungCancerFaces THIS RT @JohnLPender: T2 The fact that no one in the world seems to care. #lcsm | |
| Danielle Pardue @Actorielle RT @LungCancerFaces: T2: Media not covering us. Stigma still a huge issue. Lack of unity among the various lung cancer groups around a core… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #ButTheNarrative #lcsm #NoStigma #PatientsFirst https://t.co/VwzhIDOl01 |
| Alicia C. Staley @stales T2: Losing our friends and advocate mentors on a regular basis. #lcsm |
| #LCSM Chat @lcsmchat RT @tessa_perrin: I've been "advocating" since I looked up lung cancer stats online the night mama was dx...and nearly fainted when I saw w… |
| Kristy Rogers @LungLove4Mom #lcsm T2 when we lose someone in our group or they get sick. :( Finding volunteers, sponsors and support is tough too. |
| #LCSM Chat @lcsmchat RT @cancertrek: T2: The difficulty with getting media coverage has been an ongoing frustration for me. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: As we discussed in a previous chat, loss of fellow patients is a blow to my advocacy energies. #lcsm |
 | Jennifer C. King, PhD @JenniferCKing RT @LCAorg: Our very own @JenniferCKing discusses the changing face of #lungcancer and the importance of research, Check it out! @ResearchA… |
| Alicia C. Staley @stales T2: Feeling like progress is too slow to actually make an impact. #lcsm |
| #LCSM Chat @lcsmchat RT @tessa_perrin: T2: the most frustrating thing is the smoking stigma. Hands down. When people ask if she smoked I just reply "Does it mat… |
| Tessa Sheldon @tessa_perrin T2: because yep she smoked. Everyone seemed to during most of my life. We hated it. But whatever. I drink Diet Pepsi EVERY DAY bc I love it knowing it's horrible for me. People say THAT causes cancer, but if I got something, it's still not the stigma of smoking. #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: T1. I mostly aggregate and share info. Have done some public speaking for ALA and advocated on Capital Hill twice this ye… |
| @AliveAndKicknDD 3x #lynchsyndrome survivor, above average soccer player and coach, advocate since I had hair #lcsm | |
| Danielle Pardue @Actorielle #lcsm https://t.co/II1U6I1HFp |
| Janet Freeman-Daily @JFreemanDaily [REDACTED USER] [REDACTED USER] :p #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: T2: This is odd,but: folks who still buy in 100% to the smoking stigma OR big pharma conspiracies have stopped me talking m… |
| Danielle Pardue @Actorielle RT @stales: T2: Losing our friends and advocate mentors on a regular basis. #lcsm |
| lysa buonanno @lysabee T2 losing friends is the most difficult for me. try to exercise, meditate, pray, talk to others to cope #lcsm |
| Naomi @ChancesR3 Exactly - This! #lcsm https://t.co/LEyZGvzAae |
| #LCSM Chat @lcsmchat RT @JohnLPender: T2 The fact that no one in the world seems to care. #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @LungCancerFaces: @JFreemanDaily @JackWestMD And very glad for https://t.co/8I9tue5ZBf. I support it with my Amazon Smile purchases. #lc… |
| Bob Steele @steele_bob T2: 2 major issues. 1) Losing friends all too frequently (sometimes daily), 2) Non-responsiveness of Corps for sponsor/donations. #lcsm |
| Kristy Rogers @LungLove4Mom RT @LungCancerFaces: THIS RT @JohnLPender: T2 The fact that no one in the world seems to care. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: #ButTheNarrative #lcsm #NoStigma #PatientsFirst https://t.co/VwzhIDOl01 |
| Dave Bjork @bjork5 T2: the stigma has annoyed me for many years & frustrates me. I never smoked but always get "the question" #lcsm |
| Kathleen Skambis @KathleenSkambis T2: varying ideas of how to with stigma or ignorance of it. So many losses of both longtime friends and those I've met via activism #lcsm |
| #LCSM Chat @lcsmchat RT @stales: T2: Losing our friends and advocate mentors on a regular basis. #lcsm |
| #LCSM Chat @lcsmchat RT @stales: T2: Feeling like progress is too slow to actually make an impact. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @ChancesR3: Exactly - This! #lcsm https://t.co/LEyZGvzAae |
| lysa buonanno @lysabee T2 no media attention drives me crazy! I've been trying for years to get more attention locally #lcsm |
| @ T2 the stigma is everywhere #LCSM https://t.co/Fay9MaMuaL | |
| #LCSM Chat @lcsmchat RT @bjork5: T2: the stigma has annoyed me for many years & frustrates me. I never smoked but always get "the question" #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T2: varying ideas of how to with stigma or ignorance of it. So many losses of both longtime friends and those I've met… |
| Tessa Sheldon @tessa_perrin T2 I'm also meeting some really amazing people and it's hard to lose them, see them worry...and not be able to help #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #NoStigma #GovernmentIsPower #lcsm https://t.co/1ztYWqF5TX |
| #LCSM Chat @lcsmchat RT @lysabee: T2 no media attention drives me crazy! I've been trying for years to get more attention locally #lcsm |
| Bob Steele @steele_bob RT @lysabee: T2 no media attention drives me crazy! I've been trying for years to get more attention locally #lcsm |
| @AliveAndKicknDD T2 biggest cause of stress as an advocate is watching others seemingly go out of their way to make themselves unhealthy #lcsm | |
| Naomi @ChancesR3 T2 - the aggressive nature of LC - finding new treatments and then having the inevitable progression step in. #lcsm |
| colleen ziegler @ZieglerColleen #lcsm losing people and how little people know or understand about lung cancer |
| Bob Steele @steele_bob RT @stales: T2: Feeling like progress is too slow to actually make an impact. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @GeriGerim13: T2 the stigma is everywhere #LCSM https://t.co/Fay9MaMuaL |
| SunshineKK @SunshineKK68 the media nor the public understands the crisis of 433 deaths/day--so frustrating--hardly covered on the media #lcsm |
 | Jim Bordeaux @JBordeaux9 #lcsm |
| Alicia C. Staley @stales RT @bjork5: T2: the stigma has annoyed me for many years & frustrates me. I never smoked but always get "the question" #lcsm |
| Alicia C. Staley @stales RT @JFreemanDaily: T2: I also find it tough to be the target of anger from patients/carers who are hurting. I understand, but it stings. #l… |
| lysa buonanno @lysabee @AliveAndKicknDD how so? |
| @dennycee I’m here I’m late. T1: I volunteer as Link Navigator at the infusion and radiation center. Also weekly Lung Cancer Clinic, meeting pts who just received dx #LCSM | |
| Bob Steele @steele_bob RT @JohnLPender: T2 The fact that no one in the world seems to care. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: I find it tough to know something that WILL help a #cancer patient (e.g., tumor testing, or second opinion) and have the patient say "Oh no, my doc doesn't think it's necessary, and I trust him/her" #LCSM |
| Kathleen Skambis @KathleenSkambis T2 cope by remembering those I've lost, my good luck, fact that I am trained as advocate (trial lawyer), Exercise and non-ca friends #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: I’m here I’m late. T1: I volunteer as Link Navigator at the infusion and radiation center. Also weekly Lung Cancer Clinic,… |
| Janet Freeman-Daily @JFreemanDaily We’ll shift to Topic T3 next … #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: I find it tough to know something that WILL help a #cancer patient (e.g., tumor testing, or second opinion) and have… |
| Frank Ingram, MD @Chucktowndoc T2: patients and loved ones who are angry/frustrated NEAR me...often hard to remember they aren’t angry/frustrated WITH me. Hard not to internalize it. #LCSM |
| SOTS @sparkyontheseas @LungCancerFaces I’ll call the media out if they have a story about a minor health issue when 433 a day die from LC. #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T2 cope by remembering those I've lost, my good luck, fact that I am trained as advocate (trial lawyer), Exercise and… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD You are brave to put yourself out there. They're hurting and scared to death. Let the sting go if you can, it's not personal. You make a huge difference. #CarryOn #lcsm https://t.co/ha6tI6df2r |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @Chucktowndoc: T2: patients and loved ones who are angry/frustrated NEAR me...often hard to remember they aren’t angry/frustrated WITH… |
| @LungCancerFaces @sparkyontheseas I will see you soon for the next L&B Rally. #433aDay #lcsm | |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T2: patients and loved ones who are angry/frustrated NEAR me...often hard to remember they aren’t angry/frustrated WITH… |
| SunshineKK @SunshineKK68 How can LC get the crisis level coverage it needs #lcsm |
| Kristy Rogers @LungLove4Mom #lcsm T2 I cope by knowing my Moma is smiling down on me from heaven and any effort is better than no effort. Onwards and upwards 💜 |
| lysa buonanno @lysabee @LungCancerFaces @sparkyontheseas yay! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point, what persuaded you to continue? #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: You are brave to put yourself out there. They're hurting and scared to death. Let the sting go if you can, it's not pers… |
| #LCSM Chat @lcsmchat RT @LungLove4Mom: #lcsm T2 I cope by knowing my Moma is smiling down on me from heaven and any effort is better than no effort. Onwards an… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point,… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD There is much work left to do. #lcsm https://t.co/I6t3PNQKKV |
| Bob Steele @steele_bob RT @LungLove4Mom: #lcsm T2 I cope by knowing my Moma is smiling down on me from heaven and any effort is better than no effort. Onwards an… |
| @dennycee T2: refused to volunteer at Great Smokeout today. My supervisor understood stigma. Next year they get T-shirt’s and posters will carry heart disease and picture the other 30 cancers #LCSM | |
| @LungCancerFaces T3: Yes, I think about quitting at least once a week. By mid-November, every day. I won't, though. Too much riding on it. #lcsm | |
| lysa buonanno @lysabee @JessicaLuc1 [REDACTED USER] thanks for joining us #lcsm |
 | Mara Antonoff, MD, FACS @maraantonoff @JFreemanDaily Agree completely! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #Resilient #lcsm https://t.co/QLrEiEteCz |
| #LCSM Chat @lcsmchat RT @dennycee: T2: refused to volunteer at Great Smokeout today. My supervisor understood stigma. Next year they get T-shirt’s and poste… |
| Danielle Pardue @Actorielle RT @LungCancerFaces: T3: Yes, I think about quitting at least once a week. By mid-November, every day. I won't, though. Too much riding on… |
| Karen Loss @cancertrek T3: What was question 3? #lcsm |
| Bob Steele @steele_bob I missed T3 #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T3: Yes, I think about quitting at least once a week. By mid-November, every day. I won't, though. Too much riding on… |
| Kathleen Skambis @KathleenSkambis T3: I set mental time frames by which I will stop and reconsider if I want to go on with high level of activism. Helps me continue. #lcsm |
| @dennycee T3: as long as I draw breath I will advocate. When I can’t get out of bed I’ll access the internet from bed. #LCSM | |
| colleen ziegler @ZieglerColleen #lcsm T3 No, not as long as I am able to advocate. It does get hard |
| Bob Steele @steele_bob RT @dennycee: T3: as long as I draw breath I will advocate. When I can’t get out of bed I’ll access the internet from bed. #LCSM |
| lysa buonanno @lysabee many of us didn't see T3 #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD These are my patients #lcsm https://t.co/s0pvkWf8JQ |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/9Y5t0UOu4e |
| @AliveAndKicknDD @lysabee usually it's in the form of lifestyle choices or not following recommended guidelines #LCSM | |
| Karen Loss @cancertrek T3: I've determined which forms of advocacy I want to continue or discontinue, mainly to suit what I am best at. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point,… |
| Janet Freeman-Daily @JFreemanDaily Remember to use #lcsm in all your tweets so others participating in the chat can see them #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: T3: as long as I draw breath I will advocate. When I can’t get out of bed I’ll access the internet from bed. #LCSM |
| Karen Loss @cancertrek T3: So, I won't stop advocating, but may adjust the manner in which I go about my work in this realm. #lcsm |
| Janet Freeman-Daily @JFreemanDaily As always, you can just tweet “#LCSM” to let us know you're watching the chat #lcsm |
| #LCSM Chat @lcsmchat RT @ZieglerColleen: #lcsm T3 No, not as long as I am able to advocate. It does get hard |
| Dave Bjork @bjork5 T3: never considered quitting. Especially having met so many fellow advocates the past 4 years #lcsm |
| Anita Figueras @scifiknitter T3 No, I have not considered quitting. I'm not fit to do anything else anymore, LOL! #lcsm |
| Naomi @ChancesR3 RT @TimAllenMDJD: These are my patients #lcsm https://t.co/s0pvkWf8JQ |
| Frank Ingram, MD @Chucktowndoc T3: The work with patient groups I love. Working with politicians this year I must say I find distasteful. I would quit that in a minute if it weren’t so vital. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: These are my patients #lcsm https://t.co/s0pvkWf8JQ |
| Danielle Pardue @Actorielle @scifiknitter Saaaaaaaame, my friend! #lcsm |
| Janet Freeman-Daily @JFreemanDaily repeating T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point, what persuaded you to continue? #LCSM |
| @dennycee RT @JFreemanDaily: T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after that point,… | |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Remember to use #lcsm in all your tweets so others participating in the chat can see them #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T3: So, I won't stop advocating, but may adjust the manner in which I go about my work in this realm. #lcsm |
| #LCSM Chat @lcsmchat RT @bjork5: T3: never considered quitting. Especially having met so many fellow advocates the past 4 years #lcsm |
| lysa buonanno @lysabee T3 I take short breaks when it's too much but noever quit #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: T3 No, I have not considered quitting. I'm not fit to do anything else anymore, LOL! #lcsm |
| @ I’m here lurking 👍 #LCSM | |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T3: The work with patient groups I love. Working with politicians this year I must say I find distasteful. I would qui… |
| Mara Antonoff, MD, FACS @maraantonoff @inspired4living @JFreemanDaily I can’t tell you how often I see people who got the wrong treatment the first time around based on poor recommendations. Everyone deserves access to the best chance for cure! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: repeating T3: Have you ever considered quitting your advocacy work? If you continued your patient advocacy work after th… |
| Anita Figueras @scifiknitter This is making a difference! #LCSM https://t.co/Eun7TbgqsS |
| Bob Steele @steele_bob Very frustrated at my inability to finish advocacy articles. Gone way overboard on research. Can't find the right words & I'm a writer #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #lcsm https://t.co/ID1FUw1Y4J |
| @AliveAndKicknDD T3 it never gets easier seeing friends suffer or die too soon, but no, I've never considered not doing this #itsinmyDNA #LCSM | |
| Naomi @ChancesR3 @bjork5 I agree- meeting this community has made such a difference and continues to inspire advocacy. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: I took a month off to regroup recently--I was so exhausted I wasn't enjoying life anymore. Must keep my own cup full too. #lcsm |
| Kathleen Skambis @KathleenSkambis T3: in my soul, I'm an advocate. Will always be for lung ca. Only issue is how much of my life gets used that way. #lcsm |
| lysa buonanno @lysabee T3 used to say yes to everything; got more picky. invest time where I make most difference #lcsm |
 | Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 T3: Success means doing the best we can with what we have. Success is in the doing, not the getting – in the trying, not the triumph. Convert your adversity into opportunity #LCSM |
| Naomi @ChancesR3 @JFreemanDaily Janet your travel for advocacy has been amazing but must be exhausting. Thank you! Take time to rest too. #lcsm |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 T2: How to cope - focus on execution based performance goals rather than results based. This keeps me in line with the reality that the only parts of success I can control are my personal effort and attitude to complete a goal rather than reach a specific target. #LCSM |
| @LungCancerFaces T3: Look at all the wonderful people involved in advocacy: patients, caregivers, researchers, docs! If they can do it, I can do it. #lcsm | |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 RT @JessicaLuc1: T2: How to cope - focus on execution based performance goals rather than results based. This keeps me in line with the rea… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Please, write them anyway. #lcsm https://t.co/icDwFWodMm |
| Janet Freeman-Daily @JFreemanDaily It appears that tweets over 140 characters that I post on Twitter are not appearing in the tchat.io feed reliably. Sorry. #lcsm |
| #LCSM Chat @lcsmchat RT @AliveAndKicknDD: T3 it never gets easier seeing friends suffer or die too soon, but no, I've never considered not doing this #itsinmyDN… |
| #LCSM Chat @lcsmchat RT @ChancesR3: @bjork5 I agree- meeting this community has made such a difference and continues to inspire advocacy. #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T3: in my soul, I'm an advocate. Will always be for lung ca. Only issue is how much of my life gets used that way. #l… |
| #LCSM Chat @lcsmchat RT @lysabee: T3 used to say yes to everything; got more picky. invest time where I make most difference #lcsm |
| Janet Freeman-Daily @JFreemanDaily Topic T4 is coming up … #lcsm |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 T3: Martin Luther King "we must accept finite disappointment, but never lose infinite hope" #LCSM |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 RT @JessicaLuc1: T3: Martin Luther King "we must accept finite disappointment, but never lose infinite hope" #LCSM |
| Anita Figueras @scifiknitter RT @JFreemanDaily: T3: I took a month off to regroup recently--I was so exhausted I wasn't enjoying life anymore. Must keep my own cup full… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Can't thank @JFreemanDaily enough. #lcsm https://t.co/cdmrjYHGBI |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T3: Look at all the wonderful people involved in advocacy: patients, caregivers, researchers, docs! If they can do it,… |
| Jim Bordeaux @JBordeaux9 #LCSM T3 aggressive fund raising unsuccessful. But all turned pink and so did the businesses we asked. But it's okay now recharged! |
| lysa buonanno @lysabee @JessicaLuc1 I love that! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: It appears that tweets over 140 characters that I post on Twitter are not appearing in the tchat.io feed reliably. Sorr… |
| Bob Steele @steele_bob Don't have LC but sick 75% of days with Bronchitis. My cognitive & memory abilities have been sorely dimmed. I want to do more! #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Can't thank @JFreemanDaily enough. #lcsm https://t.co/cdmrjYHGBI |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD No guilt allowed! Thank you for all you do! #lcsm https://t.co/YmvKnTyULF |
| #LCSM Chat @lcsmchat RT @JBordeaux9: #LCSM T3 aggressive fund raising unsuccessful. But all turned pink and so did the businesses we asked. But it's okay now… |
| #LCSM Chat @lcsmchat RT @JessicaLuc1: T3: Martin Luther King "we must accept finite disappointment, but never lose infinite hope" #LCSM |
| Janet Freeman-Daily @JFreemanDaily T4: What steps did you take to help recharge advocacy energies? If you take took a break, how long was it and what did you do? #lcsm |
| #LCSM Chat @lcsmchat RT @steele_bob: Don't have LC but sick 75% of days with Bronchitis. My cognitive & memory abilities have been sorely dimmed. I want to do m… |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T4: What steps did you take to help recharge advocacy energies? If you take took a break, how long was it and what did y… |
| lysa buonanno @lysabee T4 just a short break usually helps me regroup. a week or so #lcsm |
| Mara Antonoff, MD, FACS @maraantonoff RT @TimAllenMDJD: No guilt allowed! Thank you for all you do! #lcsm https://t.co/YmvKnTyULF |
| @LungCancerFaces [REDACTED USER] Janet needs an assistant and a wife. Just saying. #lcsm | |
| lysa buonanno @lysabee T4 vacations help a lot. renews my gratitude and lights my fire to fight some more #lcsm |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 @inspired4living .@inspired4living we make the best with what we have. It is in the doing, not the getting – in the trying, not the triumph. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD Aw, garsh. Thank you! #lcsm |
| Karen Loss @cancertrek T4: Since I work full-time, my advocacy calendar is not super full. I actually get recharged whenever I get to do speaking engagements #lcsm |
| Danielle Pardue @Actorielle T4 I don't take intentional breaks. I just go a few days without answering my email sometimes. Then return to the deluge, lol! #lcsm |
| @LungCancerFaces T4: I haven't really taken a break. Have gotten more involved as years go by. Will take a nice long one starting next week. #lcsm | |
| lysa buonanno @lysabee @drCarterHarris science proved that meditation relieves stress. good for you! #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: T4 vacations help a lot. renews my gratitude and lights my fire to fight some more #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T4: Since I work full-time, my advocacy calendar is not super full. I actually get recharged whenever I get to do speaking… |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 T3: Darwin Kingsley “you all have powers you’ve never dreamed of. You can do things you never thought you could do. There are no limitations in what you can do, except the limitations in your own mind as to what you cannot do. Don’t think you cannot. Think you can.” #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T4 I don't take intentional breaks. I just go a few days without answering my email sometimes. Then return to the deluge, l… |
| Janet Freeman-Daily @JFreemanDaily T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| Frank Ingram, MD @Chucktowndoc T4: talk to colleagues and friends about my frustrations...stuff like this chat! 🙂 #LCSM |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T4: I haven't really taken a break. Have gotten more involved as years go by. Will take a nice long one starting next… |
| Kathleen Skambis @KathleenSkambis T4: Varying length short breaks to do various things. Sometimes just get off social. Sometimes vacay. #lcsm |
| Jim Bordeaux @JBordeaux9 T4 Took October away for the most part. Everyone needs a break once in awhile. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @EdenLake: T2 losing friends Ive made in the community... mortality. Scotch is the answer... scotch and obsessive work #lcsm |
| Bob Steele @steele_bob RT @JFreemanDaily: T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| Naomi @ChancesR3 T4 - no breaks since my husband needs my help more in last 2 of the 5 years since dx. No rest but it’s harder for him. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| @cancer_tm RT @JFreemanDaily: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at… | |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| Naomi @ChancesR3 RT @JFreemanDaily: T4: Mindfulness and yoga have been great for advocacy stress reduction! #lcsm |
| #LCSM Chat @lcsmchat RT @JBordeaux9: T4 Took October away for the most part. Everyone needs a break once in awhile. #lcsm |
| lysa buonanno @lysabee @ChancesR3 being a caregiver is a tough job. you're our unsung heros #lcsm |
| @LungCancerFaces @ChancesR3 Yeah, it's tough to take a break from being the primary caregiver. #lcsm | |
| Janet Freeman-Daily @JFreemanDaily T4: I must say I've had to back away from social media a bit. Need time to halt the inputs and just process. #lcsm |
| @dennycee T4: Conferences recharge me, @LUNGevity @freetobreathe @LABLifeBreath #LCSM | |
| #LCSM Chat @lcsmchat RT @lysabee: @ChancesR3 being a caregiver is a tough job. you're our unsung heros #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #NoStigma #lcsm https://t.co/4B1TxZEHFG |
| Bob Steele @steele_bob RT @lysabee: @ChancesR3 being a caregiver is a tough job. you're our unsung heros #lcsm |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 T4: You can't pour from an empty cup. Take have to take care of yourself before you can take care of others. #LCSM #selfcare #Mindfulness #burnout https://t.co/BzPiUAU7TU |
| lysa buonanno @lysabee @dennycee @LUNGevity @freetobreathe @LABLifeBreath me too! I'm always motivated when I leave #lcsm |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 RT @JessicaLuc1: T4: You can't pour from an empty cup. Take have to take care of yourself before you can take care of others. #LCSM #selfca… |
| Janet Freeman-Daily @JFreemanDaily T4: Glad to see so many advocates are practicing self-care--it's sooooo important! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: I must say I've had to back away from social media a bit. Need time to halt the inputs and just process. #lcsm |
| Naomi @ChancesR3 @LungCancerFaces I try not to let my clients know. And have to count to 10 sometimes. Lol. #lcsm |
| Anita Figueras @scifiknitter RT @lysabee: @ChancesR3 being a caregiver is a tough job. you're our unsung heros #lcsm |
| @LungCancerFaces @dennycee It's been so great to see you at "real life" advocacy events. xo #lcsm | |
| Kristy Rogers @LungLove4Mom #lcsm T4 after November I usually slow down through the holidays |
| Bob Steele @steele_bob RT @JFreemanDaily: T4: I must say I've had to back away from social media a bit. Need time to halt the inputs and just process. #lcsm |
| lysa buonanno @lysabee @itsthebunk @afreshchapter ooh I'm going to look into that. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: Glad to see so many advocates are practicing self-care--it's sooooo important! #lcsm |
| Janet Freeman-Daily @JFreemanDaily Last topic T5 is on the way … #lcsm |
| #LCSM Chat @lcsmchat RT @ChancesR3: @LungCancerFaces I try not to let my clients know. And have to count to 10 sometimes. Lol. #lcsm |
| SunshineKK @SunshineKK68 Everyone needs to decide how to split their energies between their own life and the cause #lcsm |
| lysa buonanno @lysabee T4 @healingodyssey is a great retreat in CA for cancer survivors. went last month=so awesome! #lcsm |
| Naomi @ChancesR3 @KathleenSkambis Thank you! #lcsm |
| Janet Freeman-Daily @JFreemanDaily [REDACTED USER] Advocacy is a break FROM high-stress work? Wow! #lcsm |
| #LCSM Chat @lcsmchat RT @LungLove4Mom: #lcsm T4 after November I usually slow down through the holidays |
| Bob Steele @steele_bob RT @JFreemanDaily: [REDACTED USER] Advocacy is a break FROM high-stress work? Wow! #lcsm |
| Alicia C. Staley @stales @JFreemanDaily T4: I need to learn how to take a break - and step back... So many advocate losses lately, I need to grieve and rest. #LCSM |
| lysa buonanno @lysabee @LungLove4Mom I usually take off nov-feb (except for sm) #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: T4 @healingodyssey is a great retreat in CA for cancer survivors. went last month=so awesome! #lcsm |
| Danielle Pardue @Actorielle RT @stales: @JFreemanDaily T4: I need to learn how to take a break - and step back... So many advocate losses lately, I need to grieve and… |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 T4: I exercise, travel, play the piano, trumpet, 3D print, spend time with friends and family, sleep, volunteer, watch plays, movies, sports, meditate #LCSM |
| Janet Freeman-Daily @JFreemanDaily T4: Learning to say "no" is a good stress reduction strategy. The need is great, and we're only human. #lcsm |
| Danielle Pardue @Actorielle @JFreemanDaily [REDACTED USER] Agree wholeheartedly. Would much rather do this every single day than practice law. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #SayItLoud #lcsm https://t.co/Rckm15hKpt |
| Alicia C. Staley @stales @JFreemanDaily I need to borrow this lesson from you! #lcsm |
| Bob Steele @steele_bob RT @Actorielle: @JFreemanDaily [REDACTED USER] Agree wholeheartedly. Would much rather do this every single day than practice law. #lcsm |
| #LCSM Chat @lcsmchat RT @lysabee: @LungLove4Mom I usually take off nov-feb (except for sm) #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: Learning to say "no" is a good stress reduction strategy. The need is great, and we're only human. #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: @JFreemanDaily [REDACTED USER] Agree wholeheartedly. Would much rather do this every single day than practice law. #lcsm |
| @dennycee @LungCancerFaces That was an amazing event/effort. #lcsm | |
| lysa buonanno @lysabee @JFreemanDaily it took me a while to say no. you have to #lcsm |
| @cancer_tm RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc88h7Jg), science geek, stage IV #lungcancer patient/act… | |
| Janet Freeman-Daily @JFreemanDaily T5: From your experiences in advocacy, what advice would you offer to those considering becoming cancer patient advocates? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #JustSayNo #lcsm https://t.co/OG92anjeK6 |
| Karen Loss @cancertrek T5: Don't try to do everything. Find what you are best at and build your platform. #lcsm |
| Alicia C. Staley @stales MT @JFreemanDaily T5: From your experiences in advocacy, what advice would you offer to those considering becoming cancer advocates? #lcsm |
| @AliveAndKicknDD T4 I advocate for genetic testing. I work in genetic testing. Soccer and live music are my therapy #LCSM | |
| lysa buonanno @lysabee T5 what are you good at? pick one aspect at 1st, then branch out. don't spread yourself too thin #lcsm |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 @JFreemanDaily [REDACTED USER] Absolutely! I think it has to do with a change in environment and goals, to give one a pause and the ability to revisit other things at a later time. #LCSM |
| @diseases_an RT @JFreemanDaily: T1: As patient/activist, I share #lungcancer info and my story w/others, learn about/translate LC research, and speak at… | |
| Bob Steele @steele_bob RT @lysabee: T5 what are you good at? pick one aspect at 1st, then branch out. don't spread yourself too thin #lcsm |
| Jim Bordeaux @JBordeaux9 RT @cancertrek: T5: Don't try to do everything. Find what you are best at and build your platform. #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @stales: @JFreemanDaily T4: I need to learn how to take a break - and step back... So many advocate losses lately, I need to grieve and… |
| Naomi @ChancesR3 @JFreemanDaily T5 - I would tell a new advocate that their energy and advocacy is needed and wanted. And that they help to bring hope and comfort to patients and their families. Huge! There is room for all. #lcsm |
| Frank Ingram, MD @Chucktowndoc T5: The louder the voice, the better chance that people/lawmakers will listen. Join us! #LCSM |
| Karen Loss @cancertrek T5: Be passionate. #lcsm |
| Alicia C. Staley @stales T5: Be realistic. Be gentle with yourself. Keep moving, keep going, be laser focused on what you'd like to do - Specialize! #lcsm |
| Danielle Pardue @Actorielle RT @stales: T5: Be realistic. Be gentle with yourself. Keep moving, keep going, be laser focused on what you'd like to do - Specialize! #l… |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T5: From your experiences in advocacy, what advice would you offer to those considering becoming cancer patient advocate… |
| Anita Figueras @scifiknitter Could not say it better. #LCSM https://t.co/dPwACb3NXt |
| Kristy Rogers @LungLove4Mom #lcsm t5 understand going in that not everyone you know/love will want to participate or understand the why. Don't let that stop you 💜 |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T5: From your experiences in advocacy, what advice would you offer to those considering becoming cancer patient advocate… |
| @dennycee Educate yourself, line up reliable educational resources like GRACE, JCO and other cancer journals #LCSM | |
| Janet Freeman-Daily @JFreemanDaily T5: Choose a type of advocacy work you enjoy and are good at. If you don't enjoy it, you can't keep your energy up. #lcsm |
| Bob Steele @steele_bob T5: introduce them to social media groups; start slow; pick things you really like to do for an event rally. #lcsm |
| Kathleen Skambis @KathleenSkambis T5: Do what feels right for you. Be prepared for everyone you know to ask you lots of ?s. Try to take nothing personally. Stand tall #lcsm |
| Mara Antonoff, MD, FACS @maraantonoff RT @ChancesR3: @JFreemanDaily T5 - I would tell a new advocate that their energy and advocacy is needed and wanted. And that they help to b… |
| lysa buonanno @lysabee T5 don't give up. progress can be slow moving but it is happening #lcsm |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 RT @stales: T5: Be realistic. Be gentle with yourself. Keep moving, keep going, be laser focused on what you'd like to do - Specialize! #l… |
| SunshineKK @SunshineKK68 Advocating from the heart is so powerful and so many here have that passion #lcsm |
| @LungCancerFaces T5: Advice: Persistence. I believe it's the key to everything. Passion. You can't be an advocate with out it. Unity. Divided we fall. #lcsm | |
| Anita Figueras @scifiknitter Could not say it better! #LCSM https://t.co/dPwACb3NXt |
| Janet Freeman-Daily @JFreemanDaily T5: Write your own "advocacy mission statement." Say no to opportunities that don't fulfill your mission--you can't do everything. #lcsm |
| Jim Bordeaux @JBordeaux9 T5 not just applying what you're good at but also what you're passionate about #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things one can do for #LungCancer patients. #NoStigma #433aday #lcsm #PatientsFirst https://t.co/69926N3VzL |
| #LCSM Chat @lcsmchat RT @cancertrek: T5: Don't try to do everything. Find what you are best at and build your platform. #lcsm |
| #LCSM Chat @lcsmchat RT @AliveAndKicknDD: T4 I advocate for genetic testing. I work in genetic testing. Soccer and live music are my therapy #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @LungCancerFaces: T5: Advice: Persistence. I believe it's the key to everything. Passion. You can't be an advocate with out it. Unity. D… |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 T5: Realize that the goal of advocacy does not arise from a grand vision to rid the world of cancer. Rather, it is an intention to use our knowledge and concern for others to fight such problems, one person at a time. #LCSM |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 RT @JessicaLuc1: T5: Realize that the goal of advocacy does not arise from a grand vision to rid the world of cancer. Rather, it is an inte… |
| Karen Loss @cancertrek T5: Prepare. Gain knowledge. Be confident. Know your audience, whether 1 or 1,000. #lcsm |
| #LCSM Chat @lcsmchat RT @cancertrek: T5: Be passionate. #lcsm |
| #LCSM Chat @lcsmchat RT @LungLove4Mom: #lcsm t5 understand going in that not everyone you know/love will want to participate or understand the why. Don't let t… |
| #LCSM Chat @lcsmchat RT @dennycee: Educate yourself, line up reliable educational resources like GRACE, JCO and other cancer journals #LCSM |
| Mara Antonoff, MD, FACS @maraantonoff RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things o… |
| Janet Freeman-Daily @JFreemanDaily T5: For each opportunity, ask "Is this the best way FOR ME to make a difference?" We all have different interests and skills. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: Choose a type of advocacy work you enjoy and are good at. If you don't enjoy it, you can't keep your energy up. #lcsm |
| #LCSM Chat @lcsmchat RT @steele_bob: T5: introduce them to social media groups; start slow; pick things you really like to do for an event rally. #lcsm |
| #LCSM Chat @lcsmchat RT @KathleenSkambis: T5: Do what feels right for you. Be prepared for everyone you know to ask you lots of ?s. Try to take nothing personal… |
| #LCSM Chat @lcsmchat RT @SunshineKK68: Advocating from the heart is so powerful and so many here have that passion #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: T5: Advice: Persistence. I believe it's the key to everything. Passion. You can't be an advocate with out it. Unity. D… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #WalkingTall #lcsm https://t.co/zwTZFJHVYb |
 | CTSurgSocMedNetwork @tssmn RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things o… |
| SunshineKK @SunshineKK68 The key for all is making a positive difference #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things o… |
| Janet Freeman-Daily @JFreemanDaily T5: Find the kernel of truth in your #cancer story, and build on it. Was it early detection? Tumor testing? Getting 2nd opinion? #lcsm |
| @diseases_an RT @NCICancerStats: It’s #LungCancer Awareness Month! Lung cancer is the number one leading cause of cancer death in the US: https://t.co/M… | |
| Frank Ingram, MD @Chucktowndoc T5: Remember why you’re here. #PatientsFirst #BetterTreatments #Prevention #LCSM |
| @JohnLPender 'night all. 'til next time. #lcsm | |
| Kathleen Skambis @KathleenSkambis GTG. Great chat. Love you guys. Thank you!! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T5: Find the kernel of truth in your #cancer story, and build on it. Was it early detection? Tumor testing? Getting 2nd… |
| #LCSM Chat @lcsmchat RT @SunshineKK68: The key for all is making a positive difference #lcsm |
| Janet Freeman-Daily @JFreemanDaily We’re in our final minutes - closing thoughts? #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: Find the kernel of truth in your #cancer story, and build on it. Was it early detection? Tumor testing? Getting 2nd… |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 T5: You are only ever as good as the team you belong to. Grand achievements demand more than any one person can deliver. It takes a village. #LCSM |
| lysa buonanno @lysabee @JFreemanDaily true. I've been asked to speak at certain events and I've asked "are you sure you want me to do it?" #lcsm |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T5: Remember why you’re here. #PatientsFirst #BetterTreatments #Prevention #LCSM |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 RT @JessicaLuc1: T5: You are only ever as good as the team you belong to. Grand achievements demand more than any one person can deliver. I… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #LikeABoss #lcsm https://t.co/Q0Gn9YDNhy |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 RT @Chucktowndoc: T5: Remember why you’re here. #PatientsFirst #BetterTreatments #Prevention #LCSM |
| @AliveAndKicknDD RT @EdenLake: T5 be selective, advocate where your skills connect, and you feel a connect. Its easier to make a bigger mark that way. #lcsm | |
| @dennycee T5: can’t know everything develop contacts who’ve special knowledge ie: ROS1ders, EGFR advocates, don’t be afraid to say I don’t know but I’ll find you an answer #LCSM | |
| Naomi @ChancesR3 T5 - I would also add that it’s important for advocates to keep telling the stories of all of us - people need to keep hearing our stories so they will see anyone with lungs can get LC #lcsm |
| Karen Loss @cancertrek My final thought...hope everyone has a wonderful Thanksgiving. Be grateful for so much that is good in our lives. #lcsm |
| Janet Freeman-Daily @JFreemanDaily CT: Advocacy is a calling. Do it because you're passionate. Do what you know. Keep your own energies up. Know when to let it go. #lcsm |
| @LungCancerFaces Closing thought: I'm honored to know each and every one of you. It's a privilege. I hope you all have a happy Thanksgiving. #lcsm | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Wisdom #lcsm https://t.co/626GsJx5m0 |
| lysa buonanno @lysabee thank you. great topic that we all seem to experience. you guys same me $$ on therapy ;) #lcsm |
| SunshineKK @SunshineKK68 So many here give so much and all of us appreciate and need your efforts #lcsm |
| Danielle Pardue @Actorielle RT @LungCancerFaces: Closing thought: I'm honored to know each and every one of you. It's a privilege. I hope you all have a happy Thanksgi… |
| Danielle Pardue @Actorielle @LungCancerFaces DITTO!!! #lcsm |
| lysa buonanno @lysabee happy thanksgiving #lcsm |
| Danielle Pardue @Actorielle Thank you all so much!!! Thank you @JFreemanDaily and thank you #lcsm chat! |
| Upstage Lung Cancer @UpstageLungCanc thank-you, as always, for an inspiring chat! #lcsm |
| @ Thank you for a great chat #lcsm https://t.co/FicjRlStXY | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD It is, after all, #JustMolecularChanges #lcsm #NoStigma #NoStigma #NoStigma #PatientsFirst https://t.co/mZY0KBt4h8 |
| colleen ziegler @ZieglerColleen #lcsm Thank you! Everyone have a great Thanksgiving |
| Frank Ingram, MD @Chucktowndoc Thank you all for all the hard work you do. You are valued. #LCSM |
| Janet Freeman-Daily @JFreemanDaily Tonight’s #LCSM Chat transcript "Running on Empty—Advocacy and Burnout” is at https://t.co/HM48Ss08aD |
| Jessica G.Y. Luc, MD, LLM, FRCSC @JessicaLuc1 Great #LCSM chat! Thank you for hosting @JFreemanDaily and for everyone's input. |
| @LungCancerFaces Thanks to @JFreemanDaily for moderating tonight. Our paths would never have crossed without LC advocacy. Silver linings... #lcsm | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD It has been a privilege to participate. #lcsm https://t.co/KtpFwpdZpQ |
| Jim Bordeaux @JBordeaux9 Thank you for allowing me to participate I haven't been here for a while so it's good to be back. #lcsm |
| #LCSM Chat @lcsmchat RT @ChancesR3: T5 - I would also add that it’s important for advocates to keep telling the stories of all of us - people need to keep heari… |
| Kristy Rogers @LungLove4Mom #lcsm thankful for the great group of people working hard everyday to raise awareness for #lungcancer 💜to all |
| #LCSM Chat @lcsmchat RT @cancertrek: My final thought...hope everyone has a wonderful Thanksgiving. Be grateful for so much that is good in our lives. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: CT: Advocacy is a calling. Do it because you're passionate. Do what you know. Keep your own energies up. Know when to le… |
| Anita Figueras @scifiknitter CT Thank you for being here. Happy Thanksgiving! #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: Closing thought: I'm honored to know each and every one of you. It's a privilege. I hope you all have a happy Thanksgi… |
| Naomi @ChancesR3 @TimAllenMDJD Yes / love the pathologist view you always bring with compassion and clarity! #lcsm #science |
| #LCSM Chat @lcsmchat RT @dennycee: T5: can’t know everything develop contacts who’ve special knowledge ie: ROS1ders, EGFR advocates, don’t be afraid to say I do… |
| Bob Steele @steele_bob Another helpful, inspiring Lung Cancer Social Media chat session. Thanks all... Happy Thanksgiving. C U next time. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @pattypoolqueen1 You MUST include the #LCSM hashtag in your tweets for them to appear in the #LCSM Chat feed. No space between # and LCSM. |
| Naomi @ChancesR3 RT @GeriGerim13: Thank you for a great chat #lcsm https://t.co/FicjRlStXY |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @pattypoolqueen1 You MUST include the #LCSM hashtag in your tweets for them to appear in the #LCSM Chat feed. No space b… |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Tonight’s #LCSM Chat transcript "Running on Empty—Advocacy and Burnout” is at https://t.co/HM48Ss08aD |
| @dennycee Happy and healthy Thanksgiving to an amazing group of people. #LCSM | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you. I am humbled to be part of this great #lcsm team. https://t.co/eDzSQUsET2 |
| Janet Freeman-Daily @JFreemanDaily @pattypoolqueen1 Really glad you joined us tonight! If you repost the tweets that did not not post (making sure to include #LCSM in the tweet), they WILL appear in the transcript. |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/TcSeGM4ZVh |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/df5nqGAbLo |
| @dennycee [REDACTED USER] @JFreemanDaily Can become certified as a Patient Navigator #lcsm | |
| Janet Freeman-Daily @JFreemanDaily #LCSM https://t.co/dmXG66rycA |
| Naomi @ChancesR3 @TimAllenMDJD We really appreciate your perspective. And wit. 😊#lcsm |
| Bob Steele @steele_bob RT @TimAllenMDJD: Thank you. I am humbled to be part of this great #lcsm team. https://t.co/eDzSQUsET2 |
| Bob Steele @steele_bob Time for Delsym & Codeine lol #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things o… |
| Janet Freeman-Daily @JFreemanDaily RT @LungCancerFaces: Thanks to @JFreemanDaily for moderating tonight. Our paths would never have crossed without LC advocacy. Silver lining… |
| Janet Freeman-Daily @JFreemanDaily [REDACTED USER] I don't know many people who can successfully make a living as #cancer patient advocates, but there are groups where advocates gather. Try Society for Participatory Medicine (@S4PM) #LCSM |
| Alicia C. Staley @stales RT @TimAllenMDJD: Advocacy takes time, offers no pay, and puts one in unfamiliar situations. It is also one of the most important things o… |
| Janet Freeman-Daily @JFreemanDaily RT @dennycee: [REDACTED USER] @JFreemanDaily Can become certified as a Patient Navigator #lcsm |
| Alicia C. Staley @stales Thanks to @JFreemanDaily for moderating tonight. And letting me drop in #lcsm |
| Janet Freeman-Daily @JFreemanDaily @stales Glad our patient advocate siblings @stales and @itsthebunk joined #LCSM Chat tonight! Hugs! |
| Alicia C. Staley @stales @JFreemanDaily @itsthebunk Big hugs to you! Thanks for all you do #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you. The magic is in getting everybody's perspective. #lcsm #DreamTeam https://t.co/eC1WGkwFIy |
| Sarah Jeffords @sarahkilgore23 @JohnLPender Small cell-no mutations #lcsm |
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