#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | NCI Cancer Stats @NCICancerStats Get the stats on #LungCancer here: https://t.co/hInWtL4zoG #LCSM #LCAM https://t.co/3yNAlBQNct |
 | Faces of Lung Cancer @LungCancerFaces @dennycee Hello, gorgeous! #lcsm |
 | Danielle Pardue @Actorielle Good evening, my friends! #LCSM |
 | Dr. David Tom Cooke @DavidCookeMD Sorry I am late! Tonight we have an interesting topic… #LCSM |
| Faces of Lung Cancer @LungCancerFaces @Actorielle Hey lady! #lcsm |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD We’ll be asking questions that seek perspectives from all stakeholders, including patients, caregivers, researchers & healthcare providers. #LCSM |
| Faces of Lung Cancer @LungCancerFaces @TimAllenMDJD Hi Tim! #lcsm |
 | Denise Cutlip @dennycee @LungCancerFaces @dennycee back at you! #lcsm |
| Dr. David Tom Cooke @DavidCookeMD I’m your moderator @DavidCookeMD. I’m a thoracic surgeon and #PatientCenteredOutcomes researcher. #LCSM #PCOR #LCAM17 |
 | #LCSM Chat @lcsmchat RT @DavidCookeMD: I’m your moderator @DavidCookeMD. I’m a thoracic surgeon and #PatientCenteredOutcomes researcher. #LCSM #PCOR #LCAM17 |
| Dr. David Tom Cooke @DavidCookeMD If you are just listening for the hour, please tweet: #LCSM once so we know you are out there. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Howdy #lcsm https://t.co/h2MBhoXttY |
| Dr. David Tom Cooke @DavidCookeMD Please use T1, T2. etc in tweets, and of course #LCSM, to allow everyone the chance to track the conversation. |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: If you are just listening for the hour, please tweet: If you are just listening for the hour, please tweet: #LCSM once so we know you are out there. |
| Dr. David Tom Cooke @DavidCookeMD There is a vast amount of information on the optimal treatments and approaches to beat #lungcancer. #LCSM |
 | Janet Freeman-Daily @JFreemanDaily Sorry I'm late! Janet Freeman-Daily, discombobulated metastatic lung cancer patient/activist. #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: Please use T1, T2. etc in tweets, and of course #LCSM, to allow everyone the chance to track the conversation. |
| Dr. David Tom Cooke @DavidCookeMD #SoMe forums like #LCSM, #BCSM, #HCSM, #HCLDR have been beneficial in spreading or disseminating accurate, evidenced based #LungCancer and other healthcare info. |
| Janet Freeman-Daily @JFreemanDaily Just had another round of clean labs--that's 5 years NED (No Evidence of Disease) on same clinical trial! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @JFreemanDaily Yay! #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Awesome!!!!!!!!!!! #LCSM https://t.co/qFJShbS9fU |
| Faces of Lung Cancer @LungCancerFaces Deana coming at you from Los Angeles. Another beautiful day. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD social media has its strengths and weakness in reaching all stakeholders. #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: There is a vast amount of information on the optimal treatments and approaches to beat #lungcancer. #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: #SoMe forums like #LCSM, #BCSM, #HCSM, #HCLDR have been beneficial in spreading or disseminating accurate, evidenced based #LungCancer and other healthcare info. |
| Dr. David Tom Cooke @DavidCookeMD Tonight we discuss what are good & not so good ways to disseminate #lungcancer screening, diagnosis and Rx best practices? Also during the process, perhaps we can generate new and innovative ideas!? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Just had another round of clean labs--that's 5 years NED (No Evidence of Disease) on same clinical trial! #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: social media has its strengths and weakness in reaching all stakeholders. #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: Tonight we discuss what are good & not so good ways to disseminate #lungcancer screening, diagnosis and Rx best practices? Also during the process, perhaps we can generate new and innovative ideas!? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD 2d that! #lcsm https://t.co/CWf1SB3xdT |
| Dr. David Tom Cooke @DavidCookeMD Are we ready to go? First question is coming up… #LCSM |
 | Tricia Braun @Tricia_Braun @DavidCookeMD #lcsm |
| Dr. David Tom Cooke @DavidCookeMD T1 What are the strengths of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM |
 | Mohamed Abazeed, MD, PhD @theabzlab RT @LungCancerFaces: Frankly, it really chaps my ass that Jimmy V & @TheVFoundation never talked about the fact that he had Lung Cancer. A little honesty would go a very long way for people who have the #1 cancer killer of both women & men. #NoStigma #433aday #lcsm @espn https://t.co/RNJ9gW91f4 |
| Janet Freeman-Daily @JFreemanDaily RT @DavidCookeMD We are closing out #LungCancerAwarenessMonth with an awesome topic. Tonight's Chat Topic: “Expanding the web of knowledge in #lungcancer.” #LCSM https://t.co/z9QZas8V9G |
 | CURE Today @cure_today Liquid Biopsies: A Lung Cancer Game-Changer? https://t.co/kxzClfEbU0 #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T1 What are the strengths of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM |
| Faces of Lung Cancer @LungCancerFaces RT @DavidCookeMD: T1 What are the strengths of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM |
| Dr. David Tom Cooke @DavidCookeMD RT @DavidCookeMD: T1 What are the strengths of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM |
 | Nicole Russell @nicoler61515 I’m here but just lurking! Post chemo day 2! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: RT @DavidCookeMD We are closing out #LungCancerAwarenessMonth with an awesome topic. Tonight's Chat Topic: RT @DavidCookeMD We are closing out #LungCancerAwarenessMonth with an awesome topic. Tonight's Chat Topic: “Expanding the web of knowledge in #lungcancer.” #LCSM https://t.co/z9QZas8V9G |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: Just had another round of clean labs--that's 5 years NED (No Evidence of Disease) on same clinical trial! #lcsm |
| Denise Cutlip @dennycee T2: I’ve come to know and trust that the info I get has been vetted or can be easily verified. #lcsm |
 | john @JohnLPender Wider audience. People can be reached indirectly through people's feeds. #lcsm |
| Faces of Lung Cancer @LungCancerFaces @Tricia_Braun Hey Tricia! #lcsm |
| Dr. David Tom Cooke @DavidCookeMD T1 What advantages does #SoMe have in regards to disseminating key #LungCancer info? #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1 #SoMe enables patients and caregivers in online communities to learn about new treatments and clinical trial options #lcsm |
| Faces of Lung Cancer @LungCancerFaces @NicoleR61515 Dan Dan hopes you're doing OK. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Is this trust true for all #SoMe outlets or just #LCSM and @Twitter ? https://t.co/MFUdohFfvi |
 | Paul Cox @cynicq Excellent! https://t.co/e9MBFMTca7 |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Worldwide reach. Engaged #lcsm team. Information that is trustworthy from experts. #PatientsFirst #EvidenceBasedMedicine #SkipTheHype https://t.co/1evT09ydaz |
| #LCSM Chat @lcsmchat RT @JohnLPender: Wider audience. People can be reached indirectly through people's feeds. #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: T2: T2: I’ve come to know and trust that the info I get has been vetted or can be easily verified. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1 #SoMe enables patients/caregivers to share experiences & side effect info with other with same disease and/or on same treatment #lcsm |
 | Deb Smith 🌻 @debsmithbeach HI, Deb from NH here. #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T1 What advantages does #SoMe have in regards to disseminating key #LungCancer info? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1 #SoMe enables patients and caregivers in online communities to learn about new treatments and clinical trial options #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Which online communities or platforms are the best? #LCSM https://t.co/HTbIyOASkl |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: Is this trust true for all #SoMe outlets or just #LCSM and @Twitter ? https://t.co/MFUdohFfvi |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Worldwide reach. Engaged #lcsm team. Information that is trustworthy from experts. #PatientsFirst #EvidenceBasedMedicine #SkipTheHype https://t.co/1evT09ydaz |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1 #SoMe enables patients/caregivers to share experiences & side effect info with other with same disease and/or on same treatment #lcsm |
| Faces of Lung Cancer @LungCancerFaces @debsmithbeach Hi Deb! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T1 #SoMe enables patients/caregivers to share experiences & side effect info with other with same disease and/or on same treatment #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: Which online communities or platforms are the best? #LCSM https://t.co/HTbIyOASkl |
 | Leo Waterston @LeoWaterston Important to recognize victories in the fight against big tobacco as #LungCancerAwarenessMonth comes to a close. #LCSM https://t.co/pes7Dg1NLi |
| Janet Freeman-Daily @JFreemanDaily T1 People active in #SoMe patient communities learn about trusted online resources and expert clinicians for their type of cancer #lcsm |
| Faces of Lung Cancer @LungCancerFaces @DavidCookeMD I like Twitter and Facebook best. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD This is an underappreciated aspect of learning. Understanding side effects from peers. #LCSM https://t.co/gwvKtLGhk0 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1 People active in #SoMe patient communities learn about trusted online resources and expert clinicians for their type of cancer #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: @DavidCookeMD I like Twitter and Facebook best. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @DavidCookeMD Different communities have different populations of patient/caregivers and unique strengths and weakness. #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: This is an underappreciated aspect of learning. Understanding side effects from peers. #LCSM https://t.co/gwvKtLGhk0 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @DavidCookeMD Different communities have different populations of patient/caregivers and unique strengths and weakness. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD It seems the #LungCancer community settles around @facebook and @Twitter ? #LCSM https://t.co/OhxuKjTQMX |
| Janet Freeman-Daily @JFreemanDaily T1 "Best" online patient community has (1) knowledgeable patients/caregivers, (2) discussions on YOUR cancer, (3) people you relate to #lcsm |
 | Amy Fiedler, MD @FiedlerAmy #LCSM |
| Faces of Lung Cancer @LungCancerFaces If you're out there watching, let us know by simply tweeting our hashtag #LCSM. #lcsm |
 | Anita Figueras @scifiknitter Anita here from northern NY. EGFR+, on chemo (5th line) and member of @EGFRResisters. Chemo day today, went OK! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @FiedlerAmy Hi Amy! #lcsm |
 | MaryAnn Bradley @Dollybrad #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Which platforms have the least hype? #LCSM https://t.co/gmoaKp9nlx |
| Faces of Lung Cancer @LungCancerFaces @scifiknitter @EGFRResisters Yay for OK! #lcsm |
| Anita Figueras @scifiknitter RT @DavidCookeMD: It seems the #LungCancer community settles around @facebook and @Twitter ? #LCSM https://t.co/OhxuKjTQMX |
| Dr. David Tom Cooke @DavidCookeMD RT @JFreemanDaily: T1 "Best" online patient community has (1) knowledgeable patients/caregivers, (2) discussions on YOUR cancer, (3) people you relate to #lcsm |
| Faces of Lung Cancer @LungCancerFaces @Dollybrad Hi MaryAnn! #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Ok T2 coming up shortly. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD And even though #lcsm patients and families may for very good reason be confused, scared, and even angry, the community shows admirable respect in communication that that many on social media would do well to emulate. #goteam https://t.co/BVXjR5ZimQ |
| Janet Freeman-Daily @JFreemanDaily @DavidCookeMD Knowledgeable online #lungcancer communities also exist at Inspire, Smart Patients, Health Unlocked ... #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @DavidCookeMD Knowledgeable online #lungcancer communities also exist at Inspire, Smart Patients, Health Unlocked ... #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1 "Best" online patient community has (1) knowledgeable patients/caregivers, (2) discussions on YOUR cancer, (3) people you relate to #lcsm |
| Denise Cutlip @dennycee @DavidCookeMD @Twitter #LCSM and the resources I’ve met through it. |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: If you're out there watching, let us know by simply tweeting our hashtag #LCSM. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD I second that emotion! #LCSM https://t.co/Sd7LRl2sDH |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: Which platforms have the least hype? #LCSM https://t.co/gmoaKp9nlx |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: And even though #lcsm patients and families may for very good reason be confused, scared, and even angry, the community shows admirable respect in communication that that many on social media would do well to emulate. #goteam https://t.co/BVXjR5ZimQ |
| #LCSM Chat @lcsmchat RT @dennycee: @DavidCookeMD @Twitter #LCSM and the resources I’ve met through it. |
| Dr. David Tom Cooke @DavidCookeMD How did you find out about #LCSM ? https://t.co/ilh1w0zK5W |
| Dr. David Tom Cooke @DavidCookeMD T2 What are the weaknesses of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM #LCAM17 |
 | Steven Schwartz @smsmd #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: How did you find out about #LCSM ? https://t.co/ilh1w0zK5W |
 | Naomi @ChancesR3 I’m a bit late but here! Husband is 5 year survivor of stage 4 EGFR - currently in clinical trial - 5th line of treatment. Naomi #lcsm |
| Faces of Lung Cancer @LungCancerFaces @smsmd Welcome. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD A lot of lurkers out there. Welcome! #LCSM |
| Anita Figueras @scifiknitter There are also active community on @teaminspire and thoughtful commentary on Smart Patients. #lcsm https://t.co/iydUPkoOQ8 |
| Dr. David Tom Cooke @DavidCookeMD Welcome! Never late! You are right on time! #LCSM https://t.co/O04Vcd4ZzU |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD All have levels of background noise, but I find twitter most reliable if one takes into account the source. Medical experts are sharing more and more on twitter, including residents in training. What do you think? #lcsm https://t.co/GrAxkXXqGY |
| Faces of Lung Cancer @LungCancerFaces @ChancesR3 Hey! You are so much nicer than I. No chaps my you-know-what from you. xo #lcsm |
| Denise Cutlip @dennycee @DavidCookeMD Through friendship with Janet F-D on Inspire website. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: I second that emotion! #LCSM https://t.co/Sd7LRl2sDH |
| Janet Freeman-Daily @JFreemanDaily T2 Weakness of #SoMe: by definition, it only reaches people who are active online. Given average age of #lungcancer is ~70, many patients aren't online (although their kids may be) #LCSM |
| Faces of Lung Cancer @LungCancerFaces @Jalapeno448 Thanks for joining us. #lcsm |
 | Enlightening Results 💡 @GraceCordovano @JFreemanDaily Amazing news!!! #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Some people criticize #SoMe as a means for disseminating info, because it may lack a diverse population. Those who lack internet, etc.. Thoughts? #LCSM |
| Faces of Lung Cancer @LungCancerFaces @lisadlz123 You're right on time. LOL #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @DavidCookeMD Knowledgeable online #lungcancer communities also exist at Inspire, Smart Patients, Health Unlocked ... #lcsm |
| Janet Freeman-Daily @JFreemanDaily @dennycee A serendipitous connection! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: It seems the #LungCancer community settles around @facebook and @Twitter ? #LCSM https://t.co/OhxuKjTQMX |
| Naomi @ChancesR3 @DavidCookeMD Thank you! Deana, Anita, Janet and others have been such great support - Love this group. #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T2 What are the weaknesses of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM #LCAM17 |
| #LCSM Chat @lcsmchat RT @scifiknitter: There are also active community on @teaminspire and thoughtful commentary on Smart Patients. #lcsm https://t.co/iydUPkoOQ8 |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: All have levels of background noise, but I find twitter most reliable if one takes into account the source. Medical experts are sharing more and more on twitter, including residents in training. What do you think? #lcsm https://t.co/GrAxkXXqGY |
| Enlightening Results 💡 @GraceCordovano Hi #lcsm!! Popping in to say hello. Will be in and out but will catch up later tonight. |
| Janet Freeman-Daily @JFreemanDaily T2: Another weakness of #SoMe for sharing cancer info: many docs still don't consider it "trustworthy" info #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Those who are >65 years of age prefer @facebook (but not @AlaskaAir - joke). #LCSM https://t.co/YTaNsLRMT2 |
| Faces of Lung Cancer @LungCancerFaces @dennycee @DavidCookeMD I met Janet on Inspire, too! Squanch! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD We share with those we can. We need to find alternative ways to better reach those who cannot be on social media. #lcsm https://t.co/mHwWsDviyH |
| Enlightening Results 💡 @GraceCordovano RT @JFreemanDaily: T1 "Best" online patient community has (1) knowledgeable patients/caregivers, (2) discussions on YOUR cancer, (3) people you relate to #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2 Weakness of #SoMe: T2 Weakness of #SoMe: by definition, it only reaches people who are active online. Given average age of #lungcancer is ~70, many patients aren't online (although their kids may be) #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: Some people criticize #SoMe as a means for disseminating info, because it may lack a diverse population. Those who lack internet, etc.. Thoughts? #LCSM |
| #LCSM Chat @lcsmchat RT @ChancesR3: @DavidCookeMD Thank you! Deana, Anita, Janet and others have been such great support - Love this group. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @LungCancerFaces Yep, I've made a lot of connections through Inspire. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: Another weakness of #SoMe for sharing cancer info: T2: Another weakness of #SoMe for sharing cancer info: many docs still don't consider it "trustworthy" info #lcsm |
| Denise Cutlip @dennycee The weeks intro made good point about lack of use of social media by underserved areas. T2: #lcsm |
| Dr. David Tom Cooke @DavidCookeMD A2 This is definitely true. A lot of skepticism in the doc world about #SoMe, but not amongst younger docs, or docs surrounded by younger docs. #LCSM https://t.co/1kMhasbn6f |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: We share with those we can. We need to find alternative ways to better reach those who cannot be on social media. #lcsm https://t.co/mHwWsDviyH |
| Dr. David Tom Cooke @DavidCookeMD RT @TimAllenMDJD: We share with those we can. We need to find alternative ways to better reach those who cannot be on social media. #lcsm https://t.co/mHwWsDviyH |
| #LCSM Chat @lcsmchat RT @dennycee: The weeks intro made good point about lack of use of social media by underserved areas. T2: The weeks intro made good point about lack of use of social media by underserved areas. T2: #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: Another downside of #SoMe for sharing info: if you don't stay active, newbies don't recognize you as having valuable knowledge #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @ChancesR3: @DavidCookeMD Thank you! Deana, Anita, Janet and others have been such great support - Love this group. #lcsm |
| Anita Figueras @scifiknitter T2 Patient-to-patient info sharing is spotty in focus and repetitive - only natural as newbies always arriving. Wish more clinical trial participants shared info. #lcsm |
 | Lung Cancer Halflung (K Latzka) @LungCancerHalfL Stopping by. #Lurker #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD It's up to us to make it trustworthy. Patients and families must carefully consider the source of the information. #lcsm https://t.co/jpc736qfms |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A2 This is definitely true. A lot of skepticism in the doc world about #SoMe, but not amongst younger docs, or docs surrounded by younger docs. #LCSM https://t.co/1kMhasbn6f |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: Another downside of #SoMe for sharing info: T2: Another downside of #SoMe for sharing info: if you don't stay active, newbies don't recognize you as having valuable knowledge #lcsm |
 | Flemming Rasmussen @fgrazz listening in #lcsm |
| Faces of Lung Cancer @LungCancerFaces @LungCancerHawai My favorite lurker! #lcsm |
| Steven Schwartz @smsmd T1: how do we use #SoMe to improve lung cancer screening rate (now quoted at 4% of eligible patients)?? If primary care isn’t making the referrals, how do we get the scans done? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: Another downside of #SoMe for sharing info: T2: Another downside of #SoMe for sharing info: if you don't stay active, newbies don't recognize you as having valuable knowledge #lcsm |
| Dr. David Tom Cooke @DavidCookeMD A2 More clinical trial participants is a good point. There are disease specific web communities that discuss clinical trials, correct? #LCSM https://t.co/xNZ5IiwNgv |
| #LCSM Chat @lcsmchat RT @scifiknitter: T2 Patient-to-patient info sharing is spotty in focus and repetitive - only natural as newbies always arriving. Wish more clinical trial participants shared info. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: #SoMe platforms often are not easily searchable, so wealth of archived knowledge gets lost and has to be repeated. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: It's up to us to make it trustworthy. Patients and families must carefully consider the source of the information. #lcsm https://t.co/jpc736qfms |
| #LCSM Chat @lcsmchat RT @smsmd: T1: T1: how do we use #SoMe to improve lung cancer screening rate (now quoted at 4% of eligible patients)?? If primary care isn’t making the referrals, how do we get the scans done? #LCSM |
| Dr. David Tom Cooke @DavidCookeMD A2 Another great point. @symplur are you listening!!! #LCSM https://t.co/Rydfo18nwG |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: T2: #SoMe platforms often are not easily searchable, so wealth of archived knowledge gets lost and has to be repeated. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Ok T3 coming up shortly. #LCSM |
 | colleen ziegler @ZieglerColleen #lcsm Colleen from Rochester joining |
| Janet Freeman-Daily @JFreemanDaily T1: #SoMe connections have enabled many patients to find others with their condition that are geographically nearby #lcsm |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL This! #lcsm https://t.co/bQhGNb1hp5 |
| Denise Cutlip @dennycee T2: need to overcome stigma that all #SoMe is dangerous and teach patients how to vet info so it can be trusted #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Examples? #LCSM https://t.co/SmHgfiQt4G |
| Naomi @ChancesR3 @DavidCookeMD True but sometimes hard to find the specific clinical trial. Wish that were easier - a one stop location would be great for clinical trials (wishful thought) #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Searchable blogs? #lcsm https://t.co/bwvIonlc2g |
| Dr. David Tom Cooke @DavidCookeMD T3 What about doctors, care providers & hospital admin in smaller community settings? What is best way to disseminate up to date information to them? #LCSM #HCLDR |
| Faces of Lung Cancer @LungCancerFaces I wish I knew. Any ideas @LungCancerHawai? #lcsm https://t.co/rsfziSE7be |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @dennycee: T2: T2: need to overcome stigma that all #SoMe is dangerous and teach patients how to vet info so it can be trusted #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: Unless #SoMe chat transcripts are captured & archived, they may be lost to antiquity. (Thanks @symplur for #LCSM Chat transcripts) |
| Dr. David Tom Cooke @DavidCookeMD Leads into next question - T3 What about doctors, care providers & hospital admin in smaller community settings? What is best way to disseminate up to date information? #LCSM #HCLDR https://t.co/NM0R2WjjYE |
| Dr. David Tom Cooke @DavidCookeMD RT @JFreemanDaily: T2: T2: Unless #SoMe chat transcripts are captured & archived, they may be lost to antiquity. (Thanks @symplur for #LCSM Chat transcripts) |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A2 More clinical trial participants is a good point. There are disease specific web communities that discuss clinical trials, correct? #LCSM https://t.co/xNZ5IiwNgv |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: #SoMe platforms often are not easily searchable, so wealth of archived knowledge gets lost and has to be repeated. #lcsm |
| Deb Smith 🌻 @debsmithbeach @pauldriscoll33 @AACR Thanks, Paul. Just had stable scans last week -- life is good! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: #SoMe connections have enabled many patients to find others with their condition that are geographically nearby #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: T2: T2: need to overcome stigma that all #SoMe is dangerous and teach patients how to vet info so it can be trusted #lcsm |
| #LCSM Chat @lcsmchat RT @ChancesR3: @DavidCookeMD True but sometimes hard to find the specific clinical trial. Wish that were easier - a one stop location would be great for clinical trials (wishful thought) #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Congrats! #LCSM https://t.co/khBqiMOloL |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Searchable blogs? #lcsm https://t.co/bwvIonlc2g |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T3 What about doctors, care providers & hospital admin in smaller community settings? What is best way to disseminate up to date information to them? #LCSM #HCLDR |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: Unless #SoMe chat transcripts are captured & archived, they may be lost to antiquity. (Thanks @symplur for #LCSM Chat transcripts) |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: Leads into next question - T3 What about doctors, care providers & hospital admin in smaller community settings? What is best way to disseminate up to date information? #LCSM #HCLDR https://t.co/NM0R2WjjYE |
 | Frank Ingram, MD @Chucktowndoc Ingram here. Late as usual. Community pathologist in NC. #lcsm |
| Janet Freeman-Daily @JFreemanDaily @DavidCookeMD I've met several patients with my uncommon type of cancer (ROS1+ NSCLC) that I wouldn't have encountered without the #SoMe connection #LCSM |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL I have so many ideas to increase the lung cancer screening participation rates... just need the platform #lcsm https://t.co/PWH9Gqaw8i |
| Anita Figueras @scifiknitter @DavidCookeMD Yes, but it's dependent on trial participants actually stepping forward. I found the CO-1686 trial due to patient sharing on Inspire, but have noticed little sharing overall. One current hot topic: Exon 20 trial at MD Anderson. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: Congrats! #LCSM https://t.co/khBqiMOloL |
| Dr. David Tom Cooke @DavidCookeMD T3 How do we get key info to docs so we have more screened and more tumors tested and more opening of clinical trials? #LCSM |
| Faces of Lung Cancer @LungCancerFaces RT @DavidCookeMD: Leads into next question - T3 What about doctors, care providers & hospital admin in smaller community settings? What is best way to disseminate up to date information? #LCSM #HCLDR https://t.co/NM0R2WjjYE |
| Dr. David Tom Cooke @DavidCookeMD A3 Now is the time to let us know? Perhaps we can help! #LCSM https://t.co/IR18owPP3d |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @DavidCookeMD I've met several patients with my uncommon type of cancer (ROS1+ NSCLC) that I wouldn't have encountered without the #SoMe connection #LCSM |
| Dr. David Tom Cooke @DavidCookeMD RT @scifiknitter: @DavidCookeMD Yes, but it's dependent on trial participants actually stepping forward. I found the CO-1686 trial due to patient sharing on Inspire, but have noticed little sharing overall. One current hot topic: Exon 20 trial at MD Anderson. #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @DavidCookeMD: This is an underappreciated aspect of learning. Understanding side effects from peers. #LCSM https://t.co/gwvKtLGhk0 |
| Anita Figueras @scifiknitter RT @dennycee: T2: T2: need to overcome stigma that all #SoMe is dangerous and teach patients how to vet info so it can be trusted #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @DavidCookeMD I've met several patients with my uncommon type of cancer (ROS1+ NSCLC) that I wouldn't have encountered without the #SoMe connection #LCSM |
| #LCSM Chat @lcsmchat RT @LungCancerHawai: I have so many ideas to increase the lung cancer screening participation rates... just need the platform #lcsm https://t.co/PWH9Gqaw8i |
| #LCSM Chat @lcsmchat RT @scifiknitter: @DavidCookeMD Yes, but it's dependent on trial participants actually stepping forward. I found the CO-1686 trial due to patient sharing on Inspire, but have noticed little sharing overall. One current hot topic: Exon 20 trial at MD Anderson. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Yes that has been amazing. #LCSM https://t.co/dzuLmQMADM |
| Janet Freeman-Daily @JFreemanDaily RT @TimAllenMDJD: And even though #lcsm patients and families may for very good reason be confused, scared, and even angry, the community shows admirable respect in communication that that many on social media would do well to emulate. #goteam https://t.co/BVXjR5ZimQ |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T3 How do we get key info to docs so we have more screened and more tumors tested and more opening of clinical trials? #LCSM |
| Naomi @ChancesR3 @scifiknitter @DavidCookeMD Hi Anita! I just heard one of our oncologists other patients is traveling from LA for that trial! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD We need to somehow work with industry to make this happen. #lcsm https://t.co/A4Z8LLkD4T |
| Dr. David Tom Cooke @DavidCookeMD A3 Via proliferation of industry reps? #LCSM https://t.co/jN28K7yWnw |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: We need to somehow work with industry to make this happen. #lcsm https://t.co/A4Z8LLkD4T |
| Naomi @ChancesR3 T3 does this subject ever come up at conferences? It seems this is a good palace to start so docs will be open. Patients crave the info and need docs to be on sharing as long as not confidential (names, etc). #lcsm |
 | Mark B In SD @MomsOopsBaby RT @JFreemanDaily: Just had another round of clean labs--that's 5 years NED (No Evidence of Disease) on same clinical trial! #lcsm |
| Denise Cutlip @dennycee Would it be possible to develop a curriculum about resources and award #CME credits? #lcsm |
| Anita Figueras @scifiknitter T3 Lordy lordy I wish I knew. My impression of my community cancer center is hard working doctors serving diverse patient needs & little time to do more than keep up with NCCN guidelines. #lcsm https://t.co/rQZc9Kwy33 |
| Denise Cutlip @dennycee T:3 RT @dennycee: Would it be possible to develop a curriculum about resources and award #CME credits? #lcsm |
| Dr. David Tom Cooke @DavidCookeMD A3 Conferences are often "preaching to the choir" so to speak. If docs and researchers are going to a conference, they are going out of their way to find the latest info. #LCSM https://t.co/0WiZGE0LKU |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A3 Via proliferation of industry reps? #LCSM https://t.co/jN28K7yWnw |
| Dr. David Tom Cooke @DavidCookeMD RT @scifiknitter: T3 Lordy lordy I wish I knew. My impression of my community cancer center is hard working doctors serving diverse patient needs & little time to do more than keep up with NCCN guidelines. #lcsm https://t.co/rQZc9Kwy33 |
| #LCSM Chat @lcsmchat RT @ChancesR3: T3 does this subject ever come up at conferences? It seems this is a good palace to start so docs will be open. Patients crave the info and need docs to be on sharing as long as not confidential (names, etc). #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: Would it be possible to develop a curriculum about resources and award #CME credits? #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: T3 Lordy lordy I wish I knew. My impression of my community cancer center is hard working doctors serving diverse patient needs & little time to do more than keep up with NCCN guidelines. #lcsm https://t.co/rQZc9Kwy33 |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Lol. No. I was thinking along the lines of Medical Society / industry collaborations. #lcsm https://t.co/VqhJVHdhSB |
| Naomi @ChancesR3 @DavidCookeMD Yes - but what do you think about the concept of sharing the info with communities of patients and advocates...#lcsm |
| Faces of Lung Cancer @LungCancerFaces @GjeldumChristen Welcome. #lcsm |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL Big barrier is stigma. We need to stop the cessation issues from stifling screening. Those answers will come as lives are saved! #lcsm https://t.co/yTujG48bW1 |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A3 Conferences are often "preaching to the choir" so to speak. If docs and researchers are going to a conference, they are going out of their way to find the latest info. #LCSM https://t.co/0WiZGE0LKU |
| Dr. David Tom Cooke @DavidCookeMD T3 Perhaps this is where #telemedicne can be helpful. #LCSM https://t.co/TTXdCet5qW |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: A3 Conferences are often "preaching to the choir" so to speak. If docs and researchers are going to a conference, they are going out of their way to find the latest info. #LCSM https://t.co/0WiZGE0LKU |
| Dr. David Tom Cooke @DavidCookeMD RT @ChancesR3: @DavidCookeMD Yes - but what do you think about the concept of sharing the info with communities of patients and advocates...#lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Lol. No. I was thinking along the lines of Medical Society / industry collaborations. #lcsm https://t.co/VqhJVHdhSB |
| #LCSM Chat @lcsmchat RT @ChancesR3: @DavidCookeMD Yes - but what do you think about the concept of sharing the info with communities of patients and advocates...#lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: I am on a Phase 1/2 trial that gives crizotinib (a targeted therapy) for ROS1+ non-small cell lung cancer. #lcsm |
| #LCSM Chat @lcsmchat RT @LungCancerHawai: Big barrier is stigma. We need to stop the cessation issues from stifling screening. Those answers will come as lives are saved! #lcsm https://t.co/yTujG48bW1 |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #NoStigma #NoStigma #NoStigma #lcsm https://t.co/9Tx2rNyy3c |
| Dr. David Tom Cooke @DavidCookeMD Ok T4 coming up shortly. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @GjeldumChristen Glad you were able to join us! #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T3 Perhaps this is where #telemedicne can be helpful. #LCSM https://t.co/TTXdCet5qW |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: I am on a Phase 1/2 trial that gives crizotinib (a targeted therapy) for ROS1+ non-small cell lung cancer. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: T3 Perhaps this is where #telemedicne can be helpful. #LCSM https://t.co/TTXdCet5qW |
 | Alicia C. Staley @stales RT @JFreemanDaily: T3: T3: I am on a Phase 1/2 trial that gives crizotinib (a targeted therapy) for ROS1+ non-small cell lung cancer. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work the best to reach #RuralAmerica? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Let's make this level of patient involvement in patient understanding the norm! #lcsm https://t.co/SCPJvOgOE2 |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work the best to reach #RuralAmerica? #LCSM |
| Frank Ingram, MD @Chucktowndoc T3: for increased screening it’s all about getting the primary care docs to refer eligible patients. They are who we need to reach out to. #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @DavidCookeMD: T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work the best to reach #RuralAmerica? #LCSM |
| Faces of Lung Cancer @LungCancerFaces RT @DavidCookeMD: T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work the best to reach #RuralAmerica? #LCSM |
| Dr. David Tom Cooke @DavidCookeMD T4 Only 60% of #rural Americans use #SoMe, how do we reach them with #LungCancer info? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Lack of Internet and social media access is a huge problem here. Perhaps there's a place for working with community leaders to disseminate trusted information. #lcsm https://t.co/75RmLETTW3 |
| Dr. David Tom Cooke @DavidCookeMD RT @TimAllenMDJD: Let's make this level of patient involvement in patient understanding the norm! #lcsm https://t.co/SCPJvOgOE2 |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @Chucktowndoc: T3: T3: for increased screening it’s all about getting the primary care docs to refer eligible patients. They are who we need to reach out to. #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Let's make this level of patient involvement in patient understanding the norm! #lcsm https://t.co/SCPJvOgOE2 |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T3: T3: for increased screening it’s all about getting the primary care docs to refer eligible patients. They are who we need to reach out to. #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T4 Only 60% of #rural Americans use #SoMe, how do we reach them with #LungCancer info? #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Lack of Internet and social media access is a huge problem here. Perhaps there's a place for working with community leaders to disseminate trusted information. #lcsm https://t.co/75RmLETTW3 |
| Dr. David Tom Cooke @DavidCookeMD T4 For #Rural communities, who are the most likely community leaders to help spread #LungCancer info? #LCSM https://t.co/fRrlCHPk4H |
| Janet Freeman-Daily @JFreemanDaily RT T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work the best to reach #RuralAmerica? #LCSM (didn't show up in tchat.io for some reason) |
| Alicia C. Staley @stales lurking... ps hello #lcsm |
| Anita Figueras @scifiknitter T4 I am in #RuralAmerica and fortunate to have an accredited community cancer center where doctors keep up with NCCN & listen to me. Is accreditation a basic goal for all cancer centers? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: T4 Only 60% of #rural Americans use #SoMe, how do we reach them with #LungCancer info? #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T4 For #Rural communities, who are the most likely community leaders to help spread #LungCancer info? #LCSM https://t.co/fRrlCHPk4H |
| Denise Cutlip @dennycee T3: bring more lung nurse navigators into the fold. They spend most time in patient instruction. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: RT T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work the best to reach #RuralAmerica? #LCSM (didn't show up in tchat.io for some reason) |
| Anita Figueras @scifiknitter RT @Chucktowndoc: T3: T3: for increased screening it’s all about getting the primary care docs to refer eligible patients. They are who we need to reach out to. #lcsm |
| #LCSM Chat @lcsmchat RT @scifiknitter: T4 I am in #RuralAmerica and fortunate to have an accredited community cancer center where doctors keep up with NCCN & listen to me. Is accreditation a basic goal for all cancer centers? #lcsm |
| Dr. David Tom Cooke @DavidCookeMD T4 Awesome. It should be an aspirational goal #LCSM https://t.co/TwMqvSH2Do |
| #LCSM Chat @lcsmchat RT @dennycee: T3: T3: bring more lung nurse navigators into the fold. They spend most time in patient instruction. #lcsm |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL NCI cancer centers should be require to do a certain number of “road shows” to #RuralAmerica, like Hawaii. Any takers? #lcsm https://t.co/Ci1bbHxJMR |
| Naomi @ChancesR3 RT @dennycee: T3: T3: bring more lung nurse navigators into the fold. They spend most time in patient instruction. #lcsm |
| Naomi @ChancesR3 @dennycee Great suggestion!#lcsm |
| Anita Figueras @scifiknitter This would be super! Need to find systemic funding so all cancer centers can afford to offer this. #lcsm https://t.co/Zx3yZHxQBl |
| Dr. David Tom Cooke @DavidCookeMD T4 If it is to Hawaii, sign me up! But this is a great idea. #LCSM https://t.co/m62eWvCDFC |
| #LCSM Chat @lcsmchat RT @LungCancerHawai: NCI cancer centers should be require to do a certain number of “road shows” to #RuralAmerica, like Hawaii. Any takers? #lcsm https://t.co/Ci1bbHxJMR |
| Dr. David Tom Cooke @DavidCookeMD RT @dennycee: T3: T3: bring more lung nurse navigators into the fold. They spend most time in patient instruction. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @scifiknitter: This would be super! Need to find systemic funding so all cancer centers can afford to offer this. #lcsm https://t.co/Zx3yZHxQBl |
| #LCSM Chat @lcsmchat RT @scifiknitter: This would be super! Need to find systemic funding so all cancer centers can afford to offer this. #lcsm https://t.co/Zx3yZHxQBl |
| Naomi @ChancesR3 RT @TimAllenMDJD: Let's make this level of patient involvement in patient understanding the norm! #lcsm https://t.co/SCPJvOgOE2 |
| Anita Figueras @scifiknitter RT @LungCancerHawai: NCI cancer centers should be require to do a certain number of “road shows” to #RuralAmerica, like Hawaii. Any takers? #lcsm https://t.co/Ci1bbHxJMR |
| Dr. David Tom Cooke @DavidCookeMD T4 Again, there is an internet connection availability issue, but what about webinars geared to the public, and with log in info disseminated by local papers? #LCSM https://t.co/m62eWvCDFC |
| Janet Freeman-Daily @JFreemanDaily RT @ChancesR3: @dennycee Great suggestion!#lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @dennycee: T3: T3: bring more lung nurse navigators into the fold. They spend most time in patient instruction. #lcsm |
 | mimiprovenzano @MimiProvenzano SO late, but I'm here. Hi everybody! #lcsm |
| Denise Cutlip @dennycee T4: again bringing the nurse navigators or infusion nurses who spend most time with patients into the fold. Pts come to rely on them #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Never late. Always on time! #LCSM https://t.co/ivxtjELeRz |
| Janet Freeman-Daily @JFreemanDaily RT @LungCancerHawai: NCI cancer centers should be require to do a certain number of “road shows” to #RuralAmerica, like Hawaii. Any takers? #lcsm https://t.co/Ci1bbHxJMR |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T4 Again, there is an internet connection availability issue, but what about webinars geared to the public, and with log in info disseminated by local papers? #LCSM https://t.co/m62eWvCDFC |
| #LCSM Chat @lcsmchat RT @dennycee: T4: T4: again bringing the nurse navigators or infusion nurses who spend most time with patients into the fold. Pts come to rely on them #lcsm |
| mimiprovenzano @MimiProvenzano @DavidCookeMD Hi there! #lcsm |
| Frank Ingram, MD @Chucktowndoc T3 / T4: to take a page out of @Atul_Gawande ‘s book (literally), we need to get lung CA screening on the checklist for primary care docs, right alongside flu shots, colonoscopies and mammograms #lcsm |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T3 / T4: T3 / T4: to take a page out of @Atul_Gawande ‘s book (literally), we need to get lung CA screening on the checklist for primary care docs, right alongside flu shots, colonoscopies and mammograms #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #lcsm https://t.co/rNAkD3MAmU |
| Anita Figueras @scifiknitter Come up to northern NY too - and all economically depressed rural areas where lung cancer rates are higher & few patient advocates are available. #lcsm https://t.co/wS6AXqlEd8 |
| Dr. David Tom Cooke @DavidCookeMD This is an important point. How do we convince them with data? #LCSM #lungcancerscreening. https://t.co/0spi0oi6WD |
| Dr. David Tom Cooke @DavidCookeMD RT @TimAllenMDJD: #lcsm https://t.co/rNAkD3MAmU |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL T4 in my rural America people will show up in person, not online. More people if pupus are served #LCSM https://t.co/I5EPQmvm3Y |
| Naomi @ChancesR3 RT @scifiknitter: Come up to northern NY too - and all economically depressed rural areas where lung cancer rates are higher & few patient advocates are available. #lcsm https://t.co/wS6AXqlEd8 |
| Dr. David Tom Cooke @DavidCookeMD RT @scifiknitter: Come up to northern NY too - and all economically depressed rural areas where lung cancer rates are higher & few patient advocates are available. #lcsm https://t.co/wS6AXqlEd8 |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: #lcsm https://t.co/rNAkD3MAmU |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @scifiknitter: Come up to northern NY too - and all economically depressed rural areas where lung cancer rates are higher & few patient advocates are available. #lcsm https://t.co/wS6AXqlEd8 |
| Anita Figueras @scifiknitter RT @Chucktowndoc: T3 / T4: T3 / T4: to take a page out of @Atul_Gawande ‘s book (literally), we need to get lung CA screening on the checklist for primary care docs, right alongside flu shots, colonoscopies and mammograms #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: This is an important point. How do we convince them with data? #LCSM #lungcancerscreening. https://t.co/0spi0oi6WD |
| #LCSM Chat @lcsmchat RT @LungCancerHawai: T4 in my rural America people will show up in person, not online. More people if pupus are served #LCSM https://t.co/I5EPQmvm3Y |
| Dr. David Tom Cooke @DavidCookeMD I don't know pupus. I hope it good. At least edible. #LCSM https://t.co/VTiqYxKyhY |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL YES! #lcsm https://t.co/EhSRefGdG9 |
| Dr. David Tom Cooke @DavidCookeMD OK T5 coming up shortly. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T4: Rural libraries would be good "navigators"--could help people find trusted #some sources of disease info #lcsm |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL #lcsm https://t.co/2IiDSwcrwt |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Even mailings could help. #oldschool #lcsm https://t.co/1I8iE6flYp |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: Rural libraries would be good "navigators"--could help people find trusted #some sources of disease info #lcsm |
| Dr. David Tom Cooke @DavidCookeMD T4 Are libraries more of an information hub in #RuralAmerica ? #LCSM https://t.co/diE9S1YaJ0 |
 | Heather Hogan @hoganmah RT @GoldmanLisa: |
| Anita Figueras @scifiknitter RT @JFreemanDaily: T4: T4: Rural libraries would be good "navigators"--could help people find trusted #some sources of disease info #lcsm |
| Dr. David Tom Cooke @DavidCookeMD T5 How do we measure the effectiveness of interventions for spreading information? #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T4 Are libraries more of an information hub in #RuralAmerica ? #LCSM https://t.co/diE9S1YaJ0 |
| Faces of Lung Cancer @LungCancerFaces RT @DavidCookeMD: T5 How do we measure the effectiveness of interventions for spreading information? #LCSM |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T5 How do we measure the effectiveness of interventions for spreading information? #LCSM |
 | Matthew Katz, MD 🇺🇸 💜 @subatomicdoc RT @DavidCookeMD: T5 How do we measure the effectiveness of interventions for spreading information? #LCSM |
| Deb Smith 🌻 @debsmithbeach RT @Chucktowndoc: T3 / T4: T3 / T4: to take a page out of @Atul_Gawande ‘s book (literally), we need to get lung CA screening on the checklist for primary care docs, right alongside flu shots, colonoscopies and mammograms #lcsm |
| Frank Ingram, MD @Chucktowndoc @TimAllenMDJD And billboards! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Churches? Community centers? Get ready to travel! #lcsm https://t.co/ghUIpIiFLo |
 | Audun Utengen @audvin @DavidCookeMD @symplur Listening! :) thank you Dr. Cooke #LCSM |
| Dr. David Tom Cooke @DavidCookeMD T5 Is it possible to tell if a #SoMe community has become "smarter" more "Health literate"? #LCSM |
| Dr. David Tom Cooke @DavidCookeMD Impressive. Not a Bot! #LCSM https://t.co/VwkJT9PoNt |
| Anita Figueras @scifiknitter @DavidCookeMD They are. Many offer free high speed internet and computers, a very popular service in an era where people have to apply for work online, research for school assignments, etc. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: In patient groups, we can measure how many mbrs find better docs, treatments, and clinical trials based on info shared in group #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T5 Is it possible to tell if a #SoMe community has become "smarter" more "Health literate"? #LCSM |
| Dr. David Tom Cooke @DavidCookeMD Very good point. Libraries can be a source of internet access for #RuralAmerica and therefore dissemination of evidence based info. #LCSM https://t.co/jkO365JxWU |
 | Biniam Kidane @biniamkidaneMD @MimiProvenzano Me too. Hi everyone #LCSM |
| #LCSM Chat @lcsmchat RT @scifiknitter: @DavidCookeMD They are. Many offer free high speed internet and computers, a very popular service in an era where people have to apply for work online, research for school assignments, etc. #lcsm |
| Denise Cutlip @dennycee @JFreemanDaily Libratians rock. They are trusted across many lower socio economic communities. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T5: Also speaks well of #SoMe communities when docs refer patients with specific diseases to the groups #lcsm |
| Deb Smith 🌻 @debsmithbeach @DavidCookeMD T4 I've lived in rural Maine, Alaska and NH and I'd say they definitely are. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD It will take time, but it can be done. Mortality rates, etc. #lcsm https://t.co/ikdJjhvuz9 |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T5: T5: Also speaks well of #SoMe communities when docs refer patients with specific diseases to the groups #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: In patient groups, we can measure how many mbrs find better docs, treatments, and clinical trials based on info shared in group #lcsm |
| Dr. David Tom Cooke @DavidCookeMD T5 Enrollment numbers in clincial trial I can see. Also, "is your treatment evidenced based" I can see as well. But how to define finding better docs? #LCSM https://t.co/bxdquDRktd |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: Very good point. Libraries can be a source of internet access for #RuralAmerica and therefore dissemination of evidence based info. #LCSM https://t.co/jkO365JxWU |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: Also speaks well of #SoMe communities when docs refer patients with specific diseases to the groups #lcsm |
| #LCSM Chat @lcsmchat RT @debsmithbeach: @DavidCookeMD T4 I've lived in rural Maine, Alaska and NH and I'd say they definitely are. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: It will take time, but it can be done. Mortality rates, etc. #lcsm https://t.co/ikdJjhvuz9 |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T5 Enrollment numbers in clincial trial I can see. Also, "is your treatment evidenced based" I can see as well. But how to define finding better docs? #LCSM https://t.co/bxdquDRktd |
| Dr. David Tom Cooke @DavidCookeMD T5 I do this a lot actually. #LCSM My thinking if you are putting a lot of effort to make the community accurate in its info, spread the news. #LCSM https://t.co/RdOcbRgc6o |
| Dr. David Tom Cooke @DavidCookeMD OK T6 coming up shortly. #LCSM |
| Biniam Kidane @biniamkidaneMD @DavidCookeMD T5: Timely question. A lot of analytic capabilities are built in to media these days. Still not sure they accurately assess effectiveness of disseminating information. #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T5 I do this a lot actually. #LCSM My thinking if you are putting a lot of effort to make the community accurate in its info, spread the news. #LCSM https://t.co/RdOcbRgc6o |
| Dr. David Tom Cooke @DavidCookeMD RT @biniamkidaneMD: @DavidCookeMD T5: @DavidCookeMD T5: Timely question. A lot of analytic capabilities are built in to media these days. Still not sure they accurately assess effectiveness of disseminating information. #lcsm |
| #LCSM Chat @lcsmchat RT @biniamkidaneMD: @DavidCookeMD T5: @DavidCookeMD T5: Timely question. A lot of analytic capabilities are built in to media these days. Still not sure they accurately assess effectiveness of disseminating information. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD T6 What effective methods have you seen for spreading information about #lungcancer or other #cancers? Why are they effective? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: T5 I do this a lot actually. #LCSM My thinking if you are putting a lot of effort to make the community accurate in its info, spread the news. #LCSM https://t.co/RdOcbRgc6o |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T6 What effective methods have you seen for spreading information about #lungcancer or other #cancers? Why are they effective? #LCSM |
| Faces of Lung Cancer @LungCancerFaces RT @DavidCookeMD: T6 What effective methods have you seen for spreading information about #lungcancer or other #cancers? Why are they effective? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @biniamkidaneMD: @DavidCookeMD T5: @DavidCookeMD T5: Timely question. A lot of analytic capabilities are built in to media these days. Still not sure they accurately assess effectiveness of disseminating information. #lcsm |
 | diseases_an @diseases_an RT @DavidCookeMD: T1 What are the strengths of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM |
| Denise Cutlip @dennycee T6: I set up Info tables anywhere people will let me. Making a point that I’m a 7 ye survivor st 4 when I connect with someone. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T6 Some #lungcancer advocacy orgs have created hardcopy materials for distribution in #cancer centers and online stores (e.g., https://t.co/VRVtasvbg2) #LCSM |
| Dr. David Tom Cooke @DavidCookeMD T5 Very old school but effective. #LCSm https://t.co/SeeOYZ2mV0 |
| #LCSM Chat @lcsmchat #lcsm https://t.co/1Q0UgPUdVC |
| Heather Hogan @hoganmah #LCSM T6 - Personal stories, putting a face to the disease in social media and in hard copy makes it more real. |
| Janet Freeman-Daily @JFreemanDaily RT @TimAllenMDJD: Let's make this level of patient involvement in patient understanding the norm! #lcsm https://t.co/SCPJvOgOE2 |
| #LCSM Chat @lcsmchat #lcsm https://t.co/OfHw9nZhFh |
| Dr. David Tom Cooke @DavidCookeMD T6 Also old school. But can be effective! #LCSM https://t.co/HpONKOC5fe |
| #LCSM Chat @lcsmchat RT @dennycee: T6: T6: I set up Info tables anywhere people will let me. Making a point that I’m a 7 ye survivor st 4 when I connect with someone. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD There's no substitute for hearing it from a doctor. That is why trusted social media is so powerful. Getting rural Broadband should be a priority, for the health of all who live in rural areas. They deserve the same excellent diagnosis and treatment as anyone else. #lcsm https://t.co/s5XNC7g38q |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T6 Some #lungcancer advocacy orgs have created hardcopy materials for distribution in #cancer centers and online stores (e.g., https://t.co/VRVtasvbg2) #LCSM |
| mimiprovenzano @MimiProvenzano RT @hoganmah: #LCSM T6 - Personal stories, putting a face to the disease in social media and in hard copy makes it more real. |
| #LCSM Chat @lcsmchat RT @hoganmah: #LCSM T6 - Personal stories, putting a face to the disease in social media and in hard copy makes it more real. |
| Janet Freeman-Daily @JFreemanDaily @DavidCookeMD Measure increase in patients who seek second opinions at major cancer centers #LCSM |
| Denise Cutlip @dennycee @DavidCookeMD sometimes old school is the only way to reach that huge % that don’t use #SoMe #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: There's no substitute for hearing it from a doctor. That is why trusted social media is so powerful. Getting rural Broadband should be a priority, for the health of all who live in rural areas. They deserve the same excellent diagnosis and treatment as anyone else. #lcsm https://t.co/s5XNC7g38q |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: T6 Also old school. But can be effective! #LCSM https://t.co/HpONKOC5fe |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @DavidCookeMD Measure increase in patients who seek second opinions at major cancer centers #LCSM |
| #LCSM Chat @lcsmchat RT @dennycee: @DavidCookeMD sometimes old school is the only way to reach that huge % that don’t use #SoMe #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Our challenge. #lcsm https://t.co/C12gcUHMHo |
| Dr. David Tom Cooke @DavidCookeMD T5 #Rural people running for congress are you listening to this! #LCSM @Morse4America @bateson2018 @electroza2018 et al... https://t.co/THjr1eXRAP |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @DavidCookeMD Measure increase in patients who seek second opinions at major cancer centers #LCSM |
| Dr. David Tom Cooke @DavidCookeMD Time for closing thoughts, fire away! #LCSM |
| Frank Ingram, MD @Chucktowndoc T6: the local hospitals here with screening programs in place advertise on TV/radio/SoMe #LCSM |
| Biniam Kidane @biniamkidaneMD @DavidCookeMD T6: 1/other than twitter, I am sort of an anachronism so this may reveal some of that bias. Usually I find spreading info is on a spectrum. On one end, methods that are ⬇️volume but high lasting & persona impact (I.e. grassroots small community events). #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: T5 #Rural people running for congress are you listening to this! #LCSM @Morse4America @bateson2018 @electroza2018 et al... https://t.co/THjr1eXRAP |
| #LCSM Chat @lcsmchat RT @Chucktowndoc: T6: T6: the local hospitals here with screening programs in place advertise on TV/radio/SoMe #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Attn @AjitPaiFCC #lcsm https://t.co/pPzdVBdeDt |
| #LCSM Chat @lcsmchat RT @biniamkidaneMD: @DavidCookeMD T6: @DavidCookeMD T6: 1/other than twitter, I am sort of an anachronism so this may reveal some of that bias. Usually I find spreading info is on a spectrum. On one end, methods that are ⬇️volume but high lasting & persona impact (I.e. grassroots small community events). #lcsm |
| Janet Freeman-Daily @JFreemanDaily @lcsmchat If you put the chat hashtag at the end of the tweet, have better chance of avoiding accidental combination of hashtag and tweet text (I learned this the hard way) #LCSM |
| Anita Figueras @scifiknitter RT @TimAllenMDJD: There's no substitute for hearing it from a doctor. That is why trusted social media is so powerful. Getting rural Broadband should be a priority, for the health of all who live in rural areas. They deserve the same excellent diagnosis and treatment as anyone else. #lcsm https://t.co/s5XNC7g38q |
| Dr. David Tom Cooke @DavidCookeMD Call me old fashion, but the must figure it out so their patients do not feel rushed, and get their questions answered. #LCSM https://t.co/UbSfIVbdlU |
| Anita Figueras @scifiknitter RT @dennycee: @DavidCookeMD sometimes old school is the only way to reach that huge % that don’t use #SoMe #lcsm |
| Heather Hogan @hoganmah #LCSM T6- not only an issue in US but a bigger problem trying to spread the word in Canada. |
| Dr. David Tom Cooke @DavidCookeMD RT @JFreemanDaily: @lcsmchat If you put the chat hashtag at the end of the tweet, have better chance of avoiding accidental combination of hashtag and tweet text (I learned this the hard way) #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @lcsmchat If you put the chat hashtag at the end of the tweet, have better chance of avoiding accidental combination of hashtag and tweet text (I learned this the hard way) #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #DeathByAThousandClicks #lcsm https://t.co/hPW8HgE76J |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: Call me old fashion, but the must figure it out so their patients do not feel rushed, and get their questions answered. #LCSM https://t.co/UbSfIVbdlU |
| #LCSM Chat @lcsmchat RT @hoganmah: #LCSM T6- not only an issue in US but a bigger problem trying to spread the word in Canada. |
| Dr. David Tom Cooke @DavidCookeMD RT @biniamkidaneMD: @DavidCookeMD T6: @DavidCookeMD T6: 1/other than twitter, I am sort of an anachronism so this may reveal some of that bias. Usually I find spreading info is on a spectrum. On one end, methods that are ⬇️volume but high lasting & persona impact (I.e. grassroots small community events). #lcsm |
| Lung Cancer Halflung (K Latzka) @LungCancerHalfL Thx @DavidCookeMD for a great chat! Peace out! ✌️#LCSM |
| Biniam Kidane @biniamkidaneMD @DavidCookeMD T6: 2/on the other end, high volume & probably not as much of an impact in terms of breadth and depth (eg social media campaigns). Although I must say that #SoMe & #lcsm #lcam have been changing my mind about this |
| Janet Freeman-Daily @JFreemanDaily CT: #SoMe is great for #lungcancer support & sharing treatment info, but it doesn't reach everyone. We need more outreach methods! #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Ok thanks very much for contributing. We will see you soon with another great #LCSM Chat! |
| Dr. David Tom Cooke @DavidCookeMD RT @JFreemanDaily: CT: CT: #SoMe is great for #lungcancer support & sharing treatment info, but it doesn't reach everyone. We need more outreach methods! #lcsm |
| Faces of Lung Cancer @LungCancerFaces Many thanks to @DavidCookeMD for moderation tonight. Good night to the #LCSM community! |
| Dr. David Tom Cooke @DavidCookeMD RT @biniamkidaneMD: @DavidCookeMD T6: @DavidCookeMD T6: 2/on the other end, high volume & probably not as much of an impact in terms of breadth and depth (eg social media campaigns). Although I must say that #SoMe & #lcsm #lcam have been changing my mind about this |
| Janet Freeman-Daily @JFreemanDaily Thanks for moderating #LCSM Chat tonight, @DavidCookeMD! |
| Frank Ingram, MD @Chucktowndoc Good chat, friends. Time to go be a math tutor for my sixth grader now. Until next time... #LCSM |
| #LCSM Chat @lcsmchat RT @biniamkidaneMD: @DavidCookeMD T6: @DavidCookeMD T6: 2/on the other end, high volume & probably not as much of an impact in terms of breadth and depth (eg social media campaigns). Although I must say that #SoMe & #lcsm #lcam have been changing my mind about this |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: CT: CT: #SoMe is great for #lungcancer support & sharing treatment info, but it doesn't reach everyone. We need more outreach methods! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD @DavidCookeMD FTW #lcsm https://t.co/wREHQ85o8H |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: CT: CT: #SoMe is great for #lungcancer support & sharing treatment info, but it doesn't reach everyone. We need more outreach methods! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD It has been a privilege to participate. #lcsm https://t.co/Jg5wYO9CHR |
| Biniam Kidane @biniamkidaneMD @JFreemanDaily @DavidCookeMD Thanks @DavidCookeMD #lcsm |
| Anita Figueras @scifiknitter Thank you @DavidCookeMD and everyone else for another solid chat! #lcsm |
| Janet Freeman-Daily @JFreemanDaily Tonight’s #LCSM Chat transcript "Expanding the web of knowledge in #lungcancer” is at https://t.co/QjcaJXa0qh |
| Dr. David Tom Cooke @DavidCookeMD RT @JFreemanDaily: Tonight’s #LCSM Chat transcript "Expanding the web of knowledge in #lungcancer” is at https://t.co/QjcaJXa0qh |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Tonight’s #LCSM Chat transcript "Expanding the web of knowledge in #lungcancer” is at https://t.co/QjcaJXa0qh |
 | Brendon Stiles @BrendonStilesMD With a legend of lung cancer patient advocacy, Don Stranathan, @DeptofDefense LCRP review. Loving the science and the role of patients/advocates. #lcsm https://t.co/Bosu2OWvmj |
 | Wafik S. El-Deiry, MD, PhD, FACP, FRSM @weldeiry The latest The Cancer Plus Daily! https://t.co/DKcEPXCZM7 Thanks to @TheLancetOncol @UppityCancerP @CitizenCohn #cancer #leadership |
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