#LCSM Transcript

Healthcare social media transcript of the #LCSM hashtag.
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NCI Cancer Stats @NCICancerStats
Get the stats on #LungCancer here: https://t.co/hInWtL4zoG #LCSM #LCAM https://t.co/3yNAlBQNct
Faces of Lung Cancer @LungCancerFaces
@dennycee Hello, gorgeous! #lcsm
Danielle Pardue @Actorielle
Good evening, my friends! #LCSM
Dr. David Tom Cooke @DavidCookeMD
Sorry I am late! Tonight we have an interesting topic… #LCSM
Faces of Lung Cancer @LungCancerFaces
@Actorielle Hey lady! #lcsm
Timothy Craig Allen @TimAllenMDJD
Tim here. #lcsm
Dr. David Tom Cooke @DavidCookeMD
We’ll be asking questions that seek perspectives from all stakeholders, including patients, caregivers, researchers & healthcare providers. #LCSM
Faces of Lung Cancer @LungCancerFaces
@TimAllenMDJD Hi Tim! #lcsm
Denise Cutlip @dennycee
@LungCancerFaces @dennycee back at you! #lcsm
Dr. David Tom Cooke @DavidCookeMD
I’m your moderator @DavidCookeMD. I’m a thoracic surgeon and #PatientCenteredOutcomes researcher. #LCSM #PCOR #LCAM17
#LCSM Chat @lcsmchat
RT @DavidCookeMD: I’m your moderator @DavidCookeMD. I’m a thoracic surgeon and #PatientCenteredOutcomes researcher. #LCSM #PCOR #LCAM17
Dr. David Tom Cooke @DavidCookeMD
If you are just listening for the hour, please tweet: #LCSM once so we know you are out there.
Timothy Craig Allen @TimAllenMDJD
Howdy #lcsm https://t.co/h2MBhoXttY
Dr. David Tom Cooke @DavidCookeMD
Please use T1, T2. etc in tweets, and of course #LCSM, to allow everyone the chance to track the conversation.
#LCSM Chat @lcsmchat
RT @DavidCookeMD: If you are just listening for the hour, please tweet: #LCSM once so we know you are out there.
Dr. David Tom Cooke @DavidCookeMD
There is a vast amount of information on the optimal treatments and approaches to beat #lungcancer. #LCSM
Janet Freeman-Daily @JFreemanDaily
Sorry I'm late! Janet Freeman-Daily, discombobulated metastatic lung cancer patient/activist. #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Please use T1, T2. etc in tweets, and of course #LCSM, to allow everyone the chance to track the conversation.
Dr. David Tom Cooke @DavidCookeMD
#SoMe forums like #LCSM, #BCSM, #HCSM, #HCLDR have been beneficial in spreading or disseminating accurate, evidenced based #LungCancer and other healthcare info.
Janet Freeman-Daily @JFreemanDaily
Just had another round of clean labs--that's 5 years NED (No Evidence of Disease) on same clinical trial! #lcsm
Faces of Lung Cancer @LungCancerFaces
@JFreemanDaily Yay! #lcsm
Dr. David Tom Cooke @DavidCookeMD
Awesome!!!!!!!!!!! #LCSM https://t.co/qFJShbS9fU
Faces of Lung Cancer @LungCancerFaces
Deana coming at you from Los Angeles. Another beautiful day. #lcsm
Dr. David Tom Cooke @DavidCookeMD
social media has its strengths and weakness in reaching all stakeholders. #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: There is a vast amount of information on the optimal treatments and approaches to beat #lungcancer. #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: #SoMe forums like #LCSM, #BCSM, #HCSM, #HCLDR have been beneficial in spreading or disseminating accurate, evidenced base…
Dr. David Tom Cooke @DavidCookeMD
Tonight we discuss what are good & not so good ways to disseminate #lungcancer screening, diagnosis and Rx best practices? Also during the process, perhaps we can generate new and innovative ideas!? #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Just had another round of clean labs--that's 5 years NED (No Evidence of Disease) on same clinical trial! #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: social media has its strengths and weakness in reaching all stakeholders. #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Tonight we discuss what are good & not so good ways to disseminate #lungcancer screening, diagnosis and Rx best practices…
Timothy Craig Allen @TimAllenMDJD
2d that! #lcsm https://t.co/CWf1SB3xdT
Dr. David Tom Cooke @DavidCookeMD
Are we ready to go? First question is coming up… #LCSM
Tricia *Does Not Exonerate* Braun @Tricia_Braun
@DavidCookeMD #lcsm
Dr. David Tom Cooke @DavidCookeMD
T1 What are the strengths of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM
Mohamed E. Abazeed @mohamed_abazeed
RT @LungCancerFaces: Frankly, it really chaps my ass that Jimmy V & @TheVFoundation never talked about the fact that he had Lung Cancer. A…
Janet Freeman-Daily @JFreemanDaily
RT @DavidCookeMD We are closing out #LungCancerAwarenessMonth with an awesome topic. Tonight's Chat Topic: “Expanding the web of knowledge in #lungcancer.” #LCSM https://t.co/z9QZas8V9G
CURE Magazine @cure_magazine
Liquid Biopsies: A Lung Cancer Game-Changer? https://t.co/kxzClfEbU0 #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T1 What are the strengths of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM
Faces of Lung Cancer @LungCancerFaces
RT @DavidCookeMD: T1 What are the strengths of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM
Dr. David Tom Cooke @DavidCookeMD
RT @DavidCookeMD: T1 What are the strengths of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM
Nicole Russell @nicoler61515
I’m here but just lurking! Post chemo day 2! #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: RT @DavidCookeMD We are closing out #LungCancerAwarenessMonth with an awesome topic. Tonight's Chat Topic: “Expanding t…
Faces of Lung Cancer @LungCancerFaces
RT @JFreemanDaily: Just had another round of clean labs--that's 5 years NED (No Evidence of Disease) on same clinical trial! #lcsm
John from Alabama @JohnLPender
Wider audience. People can be reached indirectly through people's feeds. #lcsm
Denise Cutlip @dennycee
T2: I’ve come to know and trust that the info I get has been vetted or can be easily verified. #lcsm
Faces of Lung Cancer @LungCancerFaces
@Tricia_Braun Hey Tricia! #lcsm
Dr. David Tom Cooke @DavidCookeMD
T1 What advantages does #SoMe have in regards to disseminating key #LungCancer info? #LCSM
Janet Freeman-Daily @JFreemanDaily
T1 #SoMe enables patients and caregivers in online communities to learn about new treatments and clinical trial options #lcsm
Faces of Lung Cancer @LungCancerFaces
@NicoleR61515 Dan Dan hopes you're doing OK. #lcsm
Dr. David Tom Cooke @DavidCookeMD
Is this trust true for all #SoMe outlets or just #LCSM and @Twitter ? https://t.co/MFUdohFfvi
Paul @cynicq
Excellent! https://t.co/e9MBFMTca7
Timothy Craig Allen @TimAllenMDJD
Worldwide reach. Engaged #lcsm team. Information that is trustworthy from experts. #PatientsFirst #EvidenceBasedMedicine #SkipTheHype https://t.co/1evT09ydaz
#LCSM Chat @lcsmchat
RT @JohnLPender: Wider audience. People can be reached indirectly through people's feeds. #lcsm
#LCSM Chat @lcsmchat
RT @dennycee: T2: I’ve come to know and trust that the info I get has been vetted or can be easily verified. #lcsm
Janet Freeman-Daily @JFreemanDaily
T1 #SoMe enables patients/caregivers to share experiences & side effect info with other with same disease and/or on same treatment #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T1 What advantages does #SoMe have in regards to disseminating key #LungCancer info? #LCSM
Deb Smith @debsmithbeach
HI, Deb from NH here. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1 #SoMe enables patients and caregivers in online communities to learn about new treatments and clinical trial options…
Dr. David Tom Cooke @DavidCookeMD
Which online communities or platforms are the best? #LCSM https://t.co/HTbIyOASkl
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Is this trust true for all #SoMe outlets or just #LCSM and @Twitter ? https://t.co/MFUdohFfvi
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Worldwide reach. Engaged #lcsm team. Information that is trustworthy from experts. #PatientsFirst #EvidenceBasedMedicine
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1 #SoMe enables patients/caregivers to share experiences & side effect info with other with same disease and/or on same…
Faces of Lung Cancer @LungCancerFaces
@debsmithbeach Hi Deb! #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T1 #SoMe enables patients/caregivers to share experiences & side effect info with other with same disease and/or on same…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Which online communities or platforms are the best? #LCSM https://t.co/HTbIyOASkl
Leo Waterston @LeoWaterston
Important to recognize victories in the fight against big tobacco as #LungCancerAwarenessMonth comes to a close. #LCSM https://t.co/pes7Dg1NLi
Janet Freeman-Daily @JFreemanDaily
T1 People active in #SoMe patient communities learn about trusted online resources and expert clinicians for their type of cancer #lcsm
Faces of Lung Cancer @LungCancerFaces
@DavidCookeMD I like Twitter and Facebook best. #lcsm
Dr. David Tom Cooke @DavidCookeMD
This is an underappreciated aspect of learning. Understanding side effects from peers. #LCSM https://t.co/gwvKtLGhk0
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1 People active in #SoMe patient communities learn about trusted online resources and expert clinicians for their type…
#LCSM Chat @lcsmchat
RT @LungCancerFaces: @DavidCookeMD I like Twitter and Facebook best. #lcsm
Janet Freeman-Daily @JFreemanDaily
@DavidCookeMD Different communities have different populations of patient/caregivers and unique strengths and weakness. #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: This is an underappreciated aspect of learning. Understanding side effects from peers. #LCSM https://t.co/gwvKtLGhk0
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @DavidCookeMD Different communities have different populations of patient/caregivers and unique strengths and weakness.…
Dr. David Tom Cooke @DavidCookeMD
It seems the #LungCancer community settles around @facebook and @Twitter ? #LCSM https://t.co/OhxuKjTQMX
Janet Freeman-Daily @JFreemanDaily
T1 "Best" online patient community has (1) knowledgeable patients/caregivers, (2) discussions on YOUR cancer, (3) people you relate to #lcsm
Amy Fiedler, MD @FiedlerAmy
#LCSM
Faces of Lung Cancer @LungCancerFaces
If you're out there watching, let us know by simply tweeting our hashtag #LCSM. #lcsm
Anita Figueras @scifiknitter
Anita here from northern NY. EGFR+, on chemo (5th line) and member of @EGFRResisters. Chemo day today, went OK! #lcsm
Faces of Lung Cancer @LungCancerFaces
@FiedlerAmy Hi Amy! #lcsm
MaryAnn Bradley @Dollybrad
#lcsm
Dr. David Tom Cooke @DavidCookeMD
Which platforms have the least hype? #LCSM https://t.co/gmoaKp9nlx
Faces of Lung Cancer @LungCancerFaces
@scifiknitter @EGFRResisters Yay for OK! #lcsm
Anita Figueras @scifiknitter
RT @DavidCookeMD: It seems the #LungCancer community settles around @facebook and @Twitter ? #LCSM https://t.co/OhxuKjTQMX
Dr. David Tom Cooke @DavidCookeMD
RT @JFreemanDaily: T1 "Best" online patient community has (1) knowledgeable patients/caregivers, (2) discussions on YOUR cancer, (3) people…
Faces of Lung Cancer @LungCancerFaces
@Dollybrad Hi MaryAnn! #lcsm
Timothy Craig Allen @TimAllenMDJD
And even though #lcsm patients and families may for very good reason be confused, scared, and even angry, the community shows admirable respect in communication that that many on social media would do well to emulate. #goteam https://t.co/BVXjR5ZimQ
Dr. David Tom Cooke @DavidCookeMD
Ok T2 coming up shortly. #LCSM
Janet Freeman-Daily @JFreemanDaily
@DavidCookeMD Knowledgeable online #lungcancer communities also exist at Inspire, Smart Patients, Health Unlocked ... #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @DavidCookeMD Knowledgeable online #lungcancer communities also exist at Inspire, Smart Patients, Health Unlocked ... #l
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1 "Best" online patient community has (1) knowledgeable patients/caregivers, (2) discussions on YOUR cancer, (3) people…
Denise Cutlip @dennycee
@DavidCookeMD @Twitter #LCSM and the resources I’ve met through it.
#LCSM Chat @lcsmchat
RT @LungCancerFaces: If you're out there watching, let us know by simply tweeting our hashtag #LCSM. #lcsm
Dr. David Tom Cooke @DavidCookeMD
I second that emotion! #LCSM https://t.co/Sd7LRl2sDH
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Which platforms have the least hype? #LCSM https://t.co/gmoaKp9nlx
Patty Watkins @Pattybeatslungc
RT @DavidCookeMD: Which online communities or platforms are the best? #LCSM https://t.co/HTbIyOASkl
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: And even though #lcsm patients and families may for very good reason be confused, scared, and even angry, the community s…
#LCSM Chat @lcsmchat
RT @dennycee: @DavidCookeMD @Twitter #LCSM and the resources I’ve met through it.
Dr. David Tom Cooke @DavidCookeMD
How did you find out about #LCSM ? https://t.co/ilh1w0zK5W
Austin @Jalapeno448
#LCSM
Dr. David Tom Cooke @DavidCookeMD
T2 What are the weaknesses of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM #LCAM17
Steven Schwartz @smsmd
#LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: How did you find out about #LCSM ? https://t.co/ilh1w0zK5W
Nay @ChancesR3
I’m a bit late but here! Husband is 5 year survivor of stage 4 EGFR - currently in clinical trial - 5th line of treatment. Naomi #lcsm
Faces of Lung Cancer @LungCancerFaces
@smsmd Welcome. #lcsm
Dr. David Tom Cooke @DavidCookeMD
A lot of lurkers out there. Welcome! #LCSM
Anita Figueras @scifiknitter
There are also active community on @teaminspire and thoughtful commentary on Smart Patients. #lcsm https://t.co/iydUPkoOQ8
Patty Watkins @Pattybeatslungc
RT @JFreemanDaily: T1 "Best" online patient community has (1) knowledgeable patients/caregivers, (2) discussions on YOUR cancer, (3) people…
Dr. David Tom Cooke @DavidCookeMD
Welcome! Never late! You are right on time! #LCSM https://t.co/O04Vcd4ZzU
Timothy Craig Allen @TimAllenMDJD
All have levels of background noise, but I find twitter most reliable if one takes into account the source. Medical experts are sharing more and more on twitter, including residents in training. What do you think? #lcsm https://t.co/GrAxkXXqGY
Faces of Lung Cancer @LungCancerFaces
@ChancesR3 Hey! You are so much nicer than I. No chaps my you-know-what from you. xo #lcsm
Lisa Listengart @lisadlz123
Hi everyone! Sorry I'm late - I had forgotten how to sign in! #lcsm
Denise Cutlip @dennycee
@DavidCookeMD Through friendship with Janet F-D on Inspire website. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @DavidCookeMD: I second that emotion! #LCSM https://t.co/Sd7LRl2sDH
Janet Freeman-Daily @JFreemanDaily
T2 Weakness of #SoMe: by definition, it only reaches people who are active online. Given average age of #lungcancer is ~70, many patients aren't online (although their kids may be) #LCSM
Faces of Lung Cancer @LungCancerFaces
@Jalapeno448 Thanks for joining us. #lcsm
Enlightening Results @GraceCordovano
@JFreemanDaily Amazing news!!! #lcsm
Dr. David Tom Cooke @DavidCookeMD
Some people criticize #SoMe as a means for disseminating info, because it may lack a diverse population. Those who lack internet, etc.. Thoughts? #LCSM
Faces of Lung Cancer @LungCancerFaces
@lisadlz123 You're right on time. LOL #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: @DavidCookeMD Knowledgeable online #lungcancer communities also exist at Inspire, Smart Patients, Health Unlocked ... #l
Timothy Craig Allen @TimAllenMDJD
RT @DavidCookeMD: It seems the #LungCancer community settles around @facebook and @Twitter ? #LCSM https://t.co/OhxuKjTQMX
Janet Freeman-Daily @JFreemanDaily
@dennycee A serendipitous connection! #lcsm
Nay @ChancesR3
@DavidCookeMD Thank you! Deana, Anita, Janet and others have been such great support - Love this group. #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T2 What are the weaknesses of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM #LC
#LCSM Chat @lcsmchat
RT @scifiknitter: There are also active community on @teaminspire and thoughtful commentary on Smart Patients. #lcsm https://t.co/iydUPkoOQ8
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: All have levels of background noise, but I find twitter most reliable if one takes into account the source. Medical expe…
Janet Freeman-Daily @JFreemanDaily
T2: Another weakness of #SoMe for sharing cancer info: many docs still don't consider it "trustworthy" info #lcsm
Enlightening Results @GraceCordovano
Hi #lcsm!! Popping in to say hello. Will be in and out but will catch up later tonight.
Dr. David Tom Cooke @DavidCookeMD
Those who are >65 years of age prefer @facebook (but not @AlaskaAir - joke). #LCSM https://t.co/YTaNsLRMT2
Faces of Lung Cancer @LungCancerFaces
@dennycee @DavidCookeMD I met Janet on Inspire, too! Squanch! #lcsm
Timothy Craig Allen @TimAllenMDJD
We share with those we can. We need to find alternative ways to better reach those who cannot be on social media. #lcsm https://t.co/mHwWsDviyH
Enlightening Results @GraceCordovano
RT @JFreemanDaily: T1 "Best" online patient community has (1) knowledgeable patients/caregivers, (2) discussions on YOUR cancer, (3) people…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2 Weakness of #SoMe: by definition, it only reaches people who are active online. Given average age of #lungcancer is ~…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Some people criticize #SoMe as a means for disseminating info, because it may lack a diverse population. Those who lack…
#LCSM Chat @lcsmchat
RT @ChancesR3: @DavidCookeMD Thank you! Deana, Anita, Janet and others have been such great support - Love this group. #lcsm
Janet Freeman-Daily @JFreemanDaily
@LungCancerFaces Yep, I've made a lot of connections through Inspire. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: Another weakness of #SoMe for sharing cancer info: many docs still don't consider it "trustworthy" info #lcsm
Denise Cutlip @dennycee
The weeks intro made good point about lack of use of social media by underserved areas. T2: #lcsm
Dr. David Tom Cooke @DavidCookeMD
A2 This is definitely true. A lot of skepticism in the doc world about #SoMe, but not amongst younger docs, or docs surrounded by younger docs. #LCSM https://t.co/1kMhasbn6f
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: We share with those we can. We need to find alternative ways to better reach those who cannot be on social media. #lcsm h…
Dr. David Tom Cooke @DavidCookeMD
RT @TimAllenMDJD: We share with those we can. We need to find alternative ways to better reach those who cannot be on social media. #lcsm h…
#LCSM Chat @lcsmchat
RT @dennycee: The weeks intro made good point about lack of use of social media by underserved areas. T2: #lcsm
Janet Freeman-Daily @JFreemanDaily
T2: Another downside of #SoMe for sharing info: if you don't stay active, newbies don't recognize you as having valuable knowledge #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @ChancesR3: @DavidCookeMD Thank you! Deana, Anita, Janet and others have been such great support - Love this group. #lcsm
Anita Figueras @scifiknitter
T2 Patient-to-patient info sharing is spotty in focus and repetitive - only natural as newbies always arriving. Wish more clinical trial participants shared info. #lcsm
Lung Cancer Halflung K Latzka @LungCancerHalfL
Stopping by. #Lurker #LCSM
Timothy Craig Allen @TimAllenMDJD
It's up to us to make it trustworthy. Patients and families must carefully consider the source of the information. #lcsm https://t.co/jpc736qfms
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A2 This is definitely true. A lot of skepticism in the doc world about #SoMe, but not amongst younger docs, or docs surr…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: Another downside of #SoMe for sharing info: if you don't stay active, newbies don't recognize you as having valuable…
Patty Watkins @Pattybeatslungc
RT @scifiknitter: Anita here from northern NY. EGFR+, on chemo (5th line) and member of @EGFRResisters. Chemo day today, went OK! #lcsm
Patty Watkins @Pattybeatslungc
RT @LungCancerFaces: @scifiknitter @EGFRResisters Yay for OK! #lcsm
Flemming Rasmussen @fgrazz
listening in #lcsm
Patty Watkins @Pattybeatslungc
RT @JFreemanDaily: @DavidCookeMD Different communities have different populations of patient/caregivers and unique strengths and weakness.…
Faces of Lung Cancer @LungCancerFaces
@LungCancerHawai My favorite lurker! #lcsm
Steven Schwartz @smsmd
T1: how do we use #SoMe to improve lung cancer screening rate (now quoted at 4% of eligible patients)?? If primary care isn’t making the referrals, how do we get the scans done? #LCSM
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T2: Another downside of #SoMe for sharing info: if you don't stay active, newbies don't recognize you as having valuable…
Dr. David Tom Cooke @DavidCookeMD
A2 More clinical trial participants is a good point. There are disease specific web communities that discuss clinical trials, correct? #LCSM https://t.co/xNZ5IiwNgv
#LCSM Chat @lcsmchat
RT @scifiknitter: T2 Patient-to-patient info sharing is spotty in focus and repetitive - only natural as newbies always arriving. Wish more…
Janet Freeman-Daily @JFreemanDaily
T2: #SoMe platforms often are not easily searchable, so wealth of archived knowledge gets lost and has to be repeated. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: It's up to us to make it trustworthy. Patients and families must carefully consider the source of the information. #lcsm
#LCSM Chat @lcsmchat
RT @smsmd: T1: how do we use #SoMe to improve lung cancer screening rate (now quoted at 4% of eligible patients)?? If primary care isn’t ma…
Dr. David Tom Cooke @DavidCookeMD
A2 Another great point. @symplur are you listening!!! #LCSM https://t.co/Rydfo18nwG
Kate Booher @i_4_talent
RT @TakedaOncology: Excited to kick off our #PowerPlayForPatients initiative - every time the Bs score on the ice, we'll donate $100 (or $2…
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T2: #SoMe platforms often are not easily searchable, so wealth of archived knowledge gets lost and has to be repeated. #…
Dr. David Tom Cooke @DavidCookeMD
Ok T3 coming up shortly. #LCSM
colleen ziegler @ZieglerColleen
#lcsm Colleen from Rochester joining
Janet Freeman-Daily @JFreemanDaily
T1: #SoMe connections have enabled many patients to find others with their condition that are geographically nearby #lcsm
Lung Cancer Halflung K Latzka @LungCancerHalfL
This! #lcsm https://t.co/bQhGNb1hp5
Denise Cutlip @dennycee
T2: need to overcome stigma that all #SoMe is dangerous and teach patients how to vet info so it can be trusted #lcsm
Dr. David Tom Cooke @DavidCookeMD
Examples? #LCSM https://t.co/SmHgfiQt4G
Nay @ChancesR3
@DavidCookeMD True but sometimes hard to find the specific clinical trial. Wish that were easier - a one stop location would be great for clinical trials (wishful thought) #lcsm
Timothy Craig Allen @TimAllenMDJD
Searchable blogs? #lcsm https://t.co/bwvIonlc2g
Dr. David Tom Cooke @DavidCookeMD
T3 What about doctors, care providers & hospital admin in smaller community settings? What is best way to disseminate up to date information to them? #LCSM #HCLDR
Faces of Lung Cancer @LungCancerFaces
I wish I knew. Any ideas @LungCancerHawai? #lcsm https://t.co/rsfziSE7be
Timothy Craig Allen @TimAllenMDJD
RT @dennycee: T2: need to overcome stigma that all #SoMe is dangerous and teach patients how to vet info so it can be trusted #lcsm
Janet Freeman-Daily @JFreemanDaily
T2: Unless #SoMe chat transcripts are captured & archived, they may be lost to antiquity. (Thanks @symplur for #LCSM Chat transcripts)
Dr. David Tom Cooke @DavidCookeMD
Leads into next question - T3 What about doctors, care providers & hospital admin in smaller community settings? What is best way to disseminate up to date information? #LCSM #HCLDR https://t.co/NM0R2WjjYE
Dr. David Tom Cooke @DavidCookeMD
RT @JFreemanDaily: T2: Unless #SoMe chat transcripts are captured & archived, they may be lost to antiquity. (Thanks @symplur for #LCSM Cha…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A2 More clinical trial participants is a good point. There are disease specific web communities that discuss clinical tr…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: #SoMe platforms often are not easily searchable, so wealth of archived knowledge gets lost and has to be repeated. #…
Deb Smith @debsmithbeach
@pauldriscoll33 @AACR Thanks, Paul. Just had stable scans last week -- life is good! #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1: #SoMe connections have enabled many patients to find others with their condition that are geographically nearby #lcsm
#LCSM Chat @lcsmchat
RT @dennycee: T2: need to overcome stigma that all #SoMe is dangerous and teach patients how to vet info so it can be trusted #lcsm
#LCSM Chat @lcsmchat
RT @ChancesR3: @DavidCookeMD True but sometimes hard to find the specific clinical trial. Wish that were easier - a one stop location would…
Dr. David Tom Cooke @DavidCookeMD
Congrats! #LCSM https://t.co/khBqiMOloL
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Searchable blogs? #lcsm https://t.co/bwvIonlc2g
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T3 What about doctors, care providers & hospital admin in smaller community settings? What is best way to disseminate up…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: Unless #SoMe chat transcripts are captured & archived, they may be lost to antiquity. (Thanks @symplur for #LCSM Cha…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Leads into next question - T3 What about doctors, care providers & hospital admin in smaller community settings? What is…
Frank Ingram, MD @Chucktowndoc
Ingram here. Late as usual. Community pathologist in NC. #lcsm
Janet Freeman-Daily @JFreemanDaily
@DavidCookeMD I've met several patients with my uncommon type of cancer (ROS1+ NSCLC) that I wouldn't have encountered without the #SoMe connection #LCSM
Lung Cancer Halflung K Latzka @LungCancerHalfL
I have so many ideas to increase the lung cancer screening participation rates... just need the platform #lcsm https://t.co/PWH9Gqaw8i
Timothy Craig Allen @TimAllenMDJD
RT @DavidCookeMD: Congrats! #LCSM https://t.co/khBqiMOloL
Anita Figueras @scifiknitter
@DavidCookeMD Yes, but it's dependent on trial participants actually stepping forward. I found the CO-1686 trial due to patient sharing on Inspire, but have noticed little sharing overall. One current hot topic: Exon 20 trial at MD Anderson. #lcsm
Dr. David Tom Cooke @DavidCookeMD
T3 How do we get key info to docs so we have more screened and more tumors tested and more opening of clinical trials? #LCSM
Faces of Lung Cancer @LungCancerFaces
RT @DavidCookeMD: Leads into next question - T3 What about doctors, care providers & hospital admin in smaller community settings? What is…
Dr. David Tom Cooke @DavidCookeMD
A3 Now is the time to let us know? Perhaps we can help! #LCSM https://t.co/IR18owPP3d
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: @DavidCookeMD I've met several patients with my uncommon type of cancer (ROS1+ NSCLC) that I wouldn't have encountered w…
Dr. David Tom Cooke @DavidCookeMD
RT @scifiknitter: @DavidCookeMD Yes, but it's dependent on trial participants actually stepping forward. I found the CO-1686 trial due to p…
Lisa Listengart @lisadlz123
RT @dennycee: T2: need to overcome stigma that all #SoMe is dangerous and teach patients how to vet info so it can be trusted #lcsm
Janet Freeman-Daily @JFreemanDaily
RT @DavidCookeMD: This is an underappreciated aspect of learning. Understanding side effects from peers. #LCSM https://t.co/gwvKtLGhk0
Anita Figueras @scifiknitter
RT @dennycee: T2: need to overcome stigma that all #SoMe is dangerous and teach patients how to vet info so it can be trusted #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @DavidCookeMD I've met several patients with my uncommon type of cancer (ROS1+ NSCLC) that I wouldn't have encountered w…
#LCSM Chat @lcsmchat
RT @LungCancerHawai: I have so many ideas to increase the lung cancer screening participation rates... just need the platform #lcsm https:/…
#LCSM Chat @lcsmchat
RT @scifiknitter: @DavidCookeMD Yes, but it's dependent on trial participants actually stepping forward. I found the CO-1686 trial due to p…
Janet Freeman-Daily @JFreemanDaily
RT @TimAllenMDJD: And even though #lcsm patients and families may for very good reason be confused, scared, and even angry, the community s…
Dr. David Tom Cooke @DavidCookeMD
Yes that has been amazing. #LCSM https://t.co/dzuLmQMADM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T3 How do we get key info to docs so we have more screened and more tumors tested and more opening of clinical trials? #L
Nay @ChancesR3
@scifiknitter @DavidCookeMD Hi Anita! I just heard one of our oncologists other patients is traveling from LA for that trial! #lcsm
Timothy Craig Allen @TimAllenMDJD
We need to somehow work with industry to make this happen. #lcsm https://t.co/A4Z8LLkD4T
Dr. David Tom Cooke @DavidCookeMD
A3 Via proliferation of industry reps? #LCSM https://t.co/jN28K7yWnw
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: We need to somehow work with industry to make this happen. #lcsm https://t.co/A4Z8LLkD4T
Nay @ChancesR3
T3 does this subject ever come up at conferences? It seems this is a good palace to start so docs will be open. Patients crave the info and need docs to be on sharing as long as not confidential (names, etc). #lcsm
AJ Pollock’s Infected Elbow @MomsOopsBaby
RT @JFreemanDaily: Just had another round of clean labs--that's 5 years NED (No Evidence of Disease) on same clinical trial! #lcsm
Denise Cutlip @dennycee
Would it be possible to develop a curriculum about resources and award #CME credits? #lcsm
Amy H. Deeken @AmyHDeekenMD
RT @TimAllenMDJD: We need to somehow work with industry to make this happen. #lcsm https://t.co/A4Z8LLkD4T
Anita Figueras @scifiknitter
T3 Lordy lordy I wish I knew. My impression of my community cancer center is hard working doctors serving diverse patient needs & little time to do more than keep up with NCCN guidelines. #lcsm https://t.co/rQZc9Kwy33
Christen Gjeldum @GjeldumChristen
#lcsm
Dr. David Tom Cooke @DavidCookeMD
A3 Conferences are often "preaching to the choir" so to speak. If docs and researchers are going to a conference, they are going out of their way to find the latest info. #LCSM https://t.co/0WiZGE0LKU
Denise Cutlip @dennycee
T:3 RT @dennycee: Would it be possible to develop a curriculum about resources and award #CME credits? #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A3 Via proliferation of industry reps? #LCSM https://t.co/jN28K7yWnw
Dr. David Tom Cooke @DavidCookeMD
RT @scifiknitter: T3 Lordy lordy I wish I knew. My impression of my community cancer center is hard working doctors serving diverse patient…
#LCSM Chat @lcsmchat
RT @ChancesR3: T3 does this subject ever come up at conferences? It seems this is a good palace to start so docs will be open. Patients cra…
#LCSM Chat @lcsmchat
RT @dennycee: Would it be possible to develop a curriculum about resources and award #CME credits? #lcsm
#LCSM Chat @lcsmchat
RT @scifiknitter: T3 Lordy lordy I wish I knew. My impression of my community cancer center is hard working doctors serving diverse patient…
Timothy Craig Allen @TimAllenMDJD
Lol. No. I was thinking along the lines of Medical Society / industry collaborations. #lcsm https://t.co/VqhJVHdhSB
Christen Gjeldum @GjeldumChristen
@jfreemandaily what is the clinical trial number? thats amazing! God Bless! #lcsm
Nay @ChancesR3
@DavidCookeMD Yes - but what do you think about the concept of sharing the info with communities of patients and advocates...#lcsm
Faces of Lung Cancer @LungCancerFaces
@GjeldumChristen Welcome. #lcsm
Lung Cancer Halflung K Latzka @LungCancerHalfL
Big barrier is stigma. We need to stop the cessation issues from stifling screening. Those answers will come as lives are saved! #lcsm https://t.co/yTujG48bW1
Dr. David Tom Cooke @DavidCookeMD
T3 Perhaps this is where #telemedicne can be helpful. #LCSM https://t.co/TTXdCet5qW
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A3 Conferences are often "preaching to the choir" so to speak. If docs and researchers are going to a conference, they a…
Timothy Craig Allen @TimAllenMDJD
RT @DavidCookeMD: A3 Conferences are often "preaching to the choir" so to speak. If docs and researchers are going to a conference, they a…
Christen Gjeldum @GjeldumChristen
thanks here on behalf of my dad #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @ChancesR3: @DavidCookeMD Yes - but what do you think about the concept of sharing the info with communities of patients and advocates..…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Lol. No. I was thinking along the lines of Medical Society / industry collaborations. #lcsm https://t.co/VqhJVHdhSB
#LCSM Chat @lcsmchat
RT @ChancesR3: @DavidCookeMD Yes - but what do you think about the concept of sharing the info with communities of patients and advocates..…
Janet Freeman-Daily @JFreemanDaily
T3: I am on a Phase 1/2 trial that gives crizotinib (a targeted therapy) for ROS1+ non-small cell lung cancer. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerHawai: Big barrier is stigma. We need to stop the cessation issues from stifling screening. Those answers will come as live…
Timothy Craig Allen @TimAllenMDJD
#NoStigma #NoStigma #NoStigma #lcsm https://t.co/9Tx2rNyy3c
Dr. David Tom Cooke @DavidCookeMD
Ok T4 coming up shortly. #LCSM
Janet Freeman-Daily @JFreemanDaily
@GjeldumChristen Glad you were able to join us! #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T3 Perhaps this is where #telemedicne can be helpful. #LCSM https://t.co/TTXdCet5qW
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3: I am on a Phase 1/2 trial that gives crizotinib (a targeted therapy) for ROS1+ non-small cell lung cancer. #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @DavidCookeMD: T3 Perhaps this is where #telemedicne can be helpful. #LCSM https://t.co/TTXdCet5qW
Christen Gjeldum @GjeldumChristen
@jfreemanDaily thanks for sharing #lcsm
Alicia C. Staley @stales
RT @JFreemanDaily: T3: I am on a Phase 1/2 trial that gives crizotinib (a targeted therapy) for ROS1+ non-small cell lung cancer. #lcsm
Dr. David Tom Cooke @DavidCookeMD
T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work the best to reach #RuralAmerica? #LCSM
Timothy Craig Allen @TimAllenMDJD
Let's make this level of patient involvement in patient understanding the norm! #lcsm https://t.co/SCPJvOgOE2
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work th…
Frank Ingram, MD @Chucktowndoc
T3: for increased screening it’s all about getting the primary care docs to refer eligible patients. They are who we need to reach out to. #lcsm
Janet Freeman-Daily @JFreemanDaily
RT @DavidCookeMD: T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work th…
Faces of Lung Cancer @LungCancerFaces
RT @DavidCookeMD: T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work th…
Dr. David Tom Cooke @DavidCookeMD
T4 Only 60% of #rural Americans use #SoMe, how do we reach them with #LungCancer info? #LCSM
Timothy Craig Allen @TimAllenMDJD
Lack of Internet and social media access is a huge problem here. Perhaps there's a place for working with community leaders to disseminate trusted information. #lcsm https://t.co/75RmLETTW3
Dr. David Tom Cooke @DavidCookeMD
RT @TimAllenMDJD: Let's make this level of patient involvement in patient understanding the norm! #lcsm https://t.co/SCPJvOgOE2
Timothy Craig Allen @TimAllenMDJD
RT @Chucktowndoc: T3: for increased screening it’s all about getting the primary care docs to refer eligible patients. They are who we nee…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Let's make this level of patient involvement in patient understanding the norm! #lcsm https://t.co/SCPJvOgOE2
#LCSM Chat @lcsmchat
RT @Chucktowndoc: T3: for increased screening it’s all about getting the primary care docs to refer eligible patients. They are who we nee…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T4 Only 60% of #rural Americans use #SoMe, how do we reach them with #LungCancer info? #LCSM
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Lack of Internet and social media access is a huge problem here. Perhaps there's a place for working with community leade…
Dr. David Tom Cooke @DavidCookeMD
T4 For #Rural communities, who are the most likely community leaders to help spread #LungCancer info? #LCSM https://t.co/fRrlCHPk4H
Janet Freeman-Daily @JFreemanDaily
RT T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might work the best to reach #RuralAmerica? #LCSM (didn't show up in tchat.io for some reason)
Alicia C. Staley @stales
lurking... ps hello #lcsm
Anita Figueras @scifiknitter
T4 I am in #RuralAmerica and fortunate to have an accredited community cancer center where doctors keep up with NCCN & listen to me. Is accreditation a basic goal for all cancer centers? #lcsm
Timothy Craig Allen @TimAllenMDJD
RT @DavidCookeMD: T4 Only 60% of #rural Americans use #SoMe, how do we reach them with #LungCancer info? #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T4 For #Rural communities, who are the most likely community leaders to help spread #LungCancer info? #LCSM https://t.co/…
Denise Cutlip @dennycee
T3: bring more lung nurse navigators into the fold. They spend most time in patient instruction. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: RT T4 Should our approach change to disseminate #lungcancer info to patients in #rural areas? What approaches might wor…
Anita Figueras @scifiknitter
RT @Chucktowndoc: T3: for increased screening it’s all about getting the primary care docs to refer eligible patients. They are who we nee…
#LCSM Chat @lcsmchat
RT @scifiknitter: T4 I am in #RuralAmerica and fortunate to have an accredited community cancer center where doctors keep up with NCCN & li…
Dr. David Tom Cooke @DavidCookeMD
T4 Awesome. It should be an aspirational goal #LCSM https://t.co/TwMqvSH2Do
#LCSM Chat @lcsmchat
RT @dennycee: T3: bring more lung nurse navigators into the fold. They spend most time in patient instruction. #lcsm
Christen Gjeldum @GjeldumChristen
T4 -Seems like Lung Cancer Survivors and their families. There are a lot of caring physicians who participate in events to spread the word as well #lcsm
Lung Cancer Halflung K Latzka @LungCancerHalfL
NCI cancer centers should be require to do a certain number of “road shows” to #RuralAmerica, like Hawaii. Any takers? #lcsm https://t.co/Ci1bbHxJMR
Nay @ChancesR3
RT @dennycee: T3: bring more lung nurse navigators into the fold. They spend most time in patient instruction. #lcsm
Lisa Listengart @lisadlz123
T4 How do we involve more patient advocates who know so much about Tx and trials? #lcsm
Nay @ChancesR3
@dennycee Great suggestion!#lcsm
#LCSM Chat @lcsmchat
RT @GjeldumChristen: T4 -Seems like Lung Cancer Survivors and their families. There are a lot of caring physicians who participate in event…
Anita Figueras @scifiknitter
This would be super! Need to find systemic funding so all cancer centers can afford to offer this. #lcsm https://t.co/Zx3yZHxQBl
Dr. David Tom Cooke @DavidCookeMD
T4 If it is to Hawaii, sign me up! But this is a great idea. #LCSM https://t.co/m62eWvCDFC
#LCSM Chat @lcsmchat
RT @LungCancerHawai: NCI cancer centers should be require to do a certain number of “road shows” to #RuralAmerica, like Hawaii. Any takers?…
Dr. David Tom Cooke @DavidCookeMD
RT @dennycee: T3: bring more lung nurse navigators into the fold. They spend most time in patient instruction. #lcsm
Christen Gjeldum @GjeldumChristen
RT @scifiknitter: This would be super! Need to find systemic funding so all cancer centers can afford to offer this. #lcsm https://t.co/Zx3…
#LCSM Chat @lcsmchat
RT @lisadlz123: T4 How do we involve more patient advocates who know so much about Tx and trials? #lcsm
Dr. David Tom Cooke @DavidCookeMD
RT @scifiknitter: This would be super! Need to find systemic funding so all cancer centers can afford to offer this. #lcsm https://t.co/Zx3…
#LCSM Chat @lcsmchat
RT @scifiknitter: This would be super! Need to find systemic funding so all cancer centers can afford to offer this. #lcsm https://t.co/Zx3…
Christen Gjeldum @GjeldumChristen
RT @lisadlz123: T4 How do we involve more patient advocates who know so much about Tx and trials? #lcsm
Nay @ChancesR3
RT @TimAllenMDJD: Let's make this level of patient involvement in patient understanding the norm! #lcsm https://t.co/SCPJvOgOE2
Anita Figueras @scifiknitter
RT @LungCancerHawai: NCI cancer centers should be require to do a certain number of “road shows” to #RuralAmerica, like Hawaii. Any takers?…
Dr. David Tom Cooke @DavidCookeMD
T4 Again, there is an internet connection availability issue, but what about webinars geared to the public, and with log in info disseminated by local papers? #LCSM https://t.co/m62eWvCDFC
Janet Freeman-Daily @JFreemanDaily
RT @ChancesR3: @dennycee Great suggestion!#lcsm
Janet Freeman-Daily @JFreemanDaily
RT @dennycee: T3: bring more lung nurse navigators into the fold. They spend most time in patient instruction. #lcsm
Mimi Provenzano @MimiProvenzano
SO late, but I'm here. Hi everybody! #lcsm
Denise Cutlip @dennycee
T4: again bringing the nurse navigators or infusion nurses who spend most time with patients into the fold. Pts come to rely on them #lcsm
Dr. David Tom Cooke @DavidCookeMD
Never late. Always on time! #LCSM https://t.co/ivxtjELeRz
Janet Freeman-Daily @JFreemanDaily
RT @LungCancerHawai: NCI cancer centers should be require to do a certain number of “road shows” to #RuralAmerica, like Hawaii. Any takers?…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T4 Again, there is an internet connection availability issue, but what about webinars geared to the public, and with log…
#LCSM Chat @lcsmchat
RT @dennycee: T4: again bringing the nurse navigators or infusion nurses who spend most time with patients into the fold. Pts come to rely…
Mimi Provenzano @MimiProvenzano
@DavidCookeMD Hi there! #lcsm
Lisa Listengart @lisadlz123
RT @dennycee: T4: again bringing the nurse navigators or infusion nurses who spend most time with patients into the fold. Pts come to rely…
Frank Ingram, MD @Chucktowndoc
T3 / T4: to take a page out of @Atul_Gawande ‘s book (literally), we need to get lung CA screening on the checklist for primary care docs, right alongside flu shots, colonoscopies and mammograms #lcsm
#LCSM Chat @lcsmchat
RT @Chucktowndoc: T3 / T4: to take a page out of @Atul_Gawande ‘s book (literally), we need to get lung CA screening on the checklist for…
Timothy Craig Allen @TimAllenMDJD
#lcsm https://t.co/rNAkD3MAmU
Anita Figueras @scifiknitter
Come up to northern NY too - and all economically depressed rural areas where lung cancer rates are higher & few patient advocates are available. #lcsm https://t.co/wS6AXqlEd8
Dr. David Tom Cooke @DavidCookeMD
This is an important point. How do we convince them with data? #LCSM #lungcancerscreening. https://t.co/0spi0oi6WD
Dr. David Tom Cooke @DavidCookeMD
RT @TimAllenMDJD: #lcsm https://t.co/rNAkD3MAmU
Lung Cancer Halflung K Latzka @LungCancerHalfL
T4 in my rural America people will show up in person, not online. More people if pupus are served #LCSM https://t.co/I5EPQmvm3Y
Nay @ChancesR3
RT @scifiknitter: Come up to northern NY too - and all economically depressed rural areas where lung cancer rates are higher & few patient…
Dr. David Tom Cooke @DavidCookeMD
RT @scifiknitter: Come up to northern NY too - and all economically depressed rural areas where lung cancer rates are higher & few patient…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: #lcsm https://t.co/rNAkD3MAmU
Timothy Craig Allen @TimAllenMDJD
RT @scifiknitter: Come up to northern NY too - and all economically depressed rural areas where lung cancer rates are higher & few patient…
Anita Figueras @scifiknitter
RT @Chucktowndoc: T3 / T4: to take a page out of @Atul_Gawande ‘s book (literally), we need to get lung CA screening on the checklist for…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: This is an important point. How do we convince them with data? #LCSM #lungcancerscreening. https://t.co/0spi0oi6WD
#LCSM Chat @lcsmchat
RT @LungCancerHawai: T4 in my rural America people will show up in person, not online. More people if pupus are served #LCSM https://t.co/…
Dr. David Tom Cooke @DavidCookeMD
I don't know pupus. I hope it good. At least edible. #LCSM https://t.co/VTiqYxKyhY
Lung Cancer Halflung K Latzka @LungCancerHalfL
YES! #lcsm https://t.co/EhSRefGdG9
Dr. David Tom Cooke @DavidCookeMD
OK T5 coming up shortly. #LCSM
Janet Freeman-Daily @JFreemanDaily
T4: Rural libraries would be good "navigators"--could help people find trusted #some sources of disease info #lcsm
Lung Cancer Halflung K Latzka @LungCancerHalfL
#lcsm https://t.co/2IiDSwcrwt
Timothy Craig Allen @TimAllenMDJD
Even mailings could help. #oldschool #lcsm https://t.co/1I8iE6flYp
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T4: Rural libraries would be good "navigators"--could help people find trusted #some sources of disease info #lcsm
Dr. David Tom Cooke @DavidCookeMD
T4 Are libraries more of an information hub in #RuralAmerica ? #LCSM https://t.co/diE9S1YaJ0
Heather Hogan @hoganmah
RT @GoldmanLisa: .@PeopleMagazine, @ValerieHarper has lung cancer that spread, not brain cancer. Stop the fake news. LC patients need help,…
Anita Figueras @scifiknitter
RT @JFreemanDaily: T4: Rural libraries would be good "navigators"--could help people find trusted #some sources of disease info #lcsm
Dr. David Tom Cooke @DavidCookeMD
T5 How do we measure the effectiveness of interventions for spreading information? #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T4 Are libraries more of an information hub in #RuralAmerica ? #LCSM https://t.co/diE9S1YaJ0
Faces of Lung Cancer @LungCancerFaces
RT @DavidCookeMD: T5 How do we measure the effectiveness of interventions for spreading information? #LCSM
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T5 How do we measure the effectiveness of interventions for spreading information? #LCSM
Matthew Katz, MD @subatomicdoc
RT @DavidCookeMD: T5 How do we measure the effectiveness of interventions for spreading information? #LCSM
Deb Smith @debsmithbeach
RT @Chucktowndoc: T3 / T4: to take a page out of @Atul_Gawande ‘s book (literally), we need to get lung CA screening on the checklist for…
Frank Ingram, MD @Chucktowndoc
@TimAllenMDJD And billboards! #lcsm
Timothy Craig Allen @TimAllenMDJD
Churches? Community centers? Get ready to travel! #lcsm https://t.co/ghUIpIiFLo
Audun Utengen @audvin
@DavidCookeMD @symplur Listening! :) thank you Dr. Cooke #LCSM
Dr. David Tom Cooke @DavidCookeMD
T5 Is it possible to tell if a #SoMe community has become "smarter" more "Health literate"? #LCSM
Dr. David Tom Cooke @DavidCookeMD
Impressive. Not a Bot! #LCSM https://t.co/VwkJT9PoNt
Anita Figueras @scifiknitter
@DavidCookeMD They are. Many offer free high speed internet and computers, a very popular service in an era where people have to apply for work online, research for school assignments, etc. #lcsm
MaryPat Grigsby @mpgrigs
RT @LungCancerFaces: I wish I knew. Any ideas @LungCancerHawai? #lcsm https://t.co/rsfziSE7be
Janet Freeman-Daily @JFreemanDaily
T5: In patient groups, we can measure how many mbrs find better docs, treatments, and clinical trials based on info shared in group #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T5 Is it possible to tell if a #SoMe community has become "smarter" more "Health literate"? #LCSM
Dr. David Tom Cooke @DavidCookeMD
Very good point. Libraries can be a source of internet access for #RuralAmerica and therefore dissemination of evidence based info. #LCSM https://t.co/jkO365JxWU
#LCSM Chat @lcsmchat
RT @scifiknitter: @DavidCookeMD They are. Many offer free high speed internet and computers, a very popular service in an era where people…
Biniam Kidane @biniamkidaneMD
@MimiProvenzano Me too. Hi everyone #LCSM
Denise Cutlip @dennycee
@JFreemanDaily Libratians rock. They are trusted across many lower socio economic communities. #lcsm
Janet Freeman-Daily @JFreemanDaily
T5: Also speaks well of #SoMe communities when docs refer patients with specific diseases to the groups #lcsm
Deb Smith @debsmithbeach
@DavidCookeMD T4 I've lived in rural Maine, Alaska and NH and I'd say they definitely are. #LCSM
Timothy Craig Allen @TimAllenMDJD
It will take time, but it can be done. Mortality rates, etc. #lcsm https://t.co/ikdJjhvuz9
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: T5: Also speaks well of #SoMe communities when docs refer patients with specific diseases to the groups #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T5: In patient groups, we can measure how many mbrs find better docs, treatments, and clinical trials based on info shar…
Dr. David Tom Cooke @DavidCookeMD
T5 Enrollment numbers in clincial trial I can see. Also, "is your treatment evidenced based" I can see as well. But how to define finding better docs? #LCSM https://t.co/bxdquDRktd
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Very good point. Libraries can be a source of internet access for #RuralAmerica and therefore dissemination of evidence…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T5: Also speaks well of #SoMe communities when docs refer patients with specific diseases to the groups #lcsm
#LCSM Chat @lcsmchat
RT @debsmithbeach: @DavidCookeMD T4 I've lived in rural Maine, Alaska and NH and I'd say they definitely are. #LCSM
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: It will take time, but it can be done. Mortality rates, etc. #lcsm https://t.co/ikdJjhvuz9
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T5 Enrollment numbers in clincial trial I can see. Also, "is your treatment evidenced based" I can see as well. But how…
Dr. David Tom Cooke @DavidCookeMD
T5 I do this a lot actually. #LCSM My thinking if you are putting a lot of effort to make the community accurate in its info, spread the news. #LCSM https://t.co/RdOcbRgc6o
Dr. David Tom Cooke @DavidCookeMD
OK T6 coming up shortly. #LCSM
Biniam Kidane @biniamkidaneMD
@DavidCookeMD T5: Timely question. A lot of analytic capabilities are built in to media these days. Still not sure they accurately assess effectiveness of disseminating information. #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T5 I do this a lot actually. #LCSM My thinking if you are putting a lot of effort to make the community accurate in its…
Dr. David Tom Cooke @DavidCookeMD
RT @biniamkidaneMD: @DavidCookeMD T5: Timely question. A lot of analytic capabilities are built in to media these days. Still not sure they…
#LCSM Chat @lcsmchat
RT @biniamkidaneMD: @DavidCookeMD T5: Timely question. A lot of analytic capabilities are built in to media these days. Still not sure they…
Dr. David Tom Cooke @DavidCookeMD
T6 What effective methods have you seen for spreading information about #lungcancer or other #cancers? Why are they effective? #LCSM
Timothy Craig Allen @TimAllenMDJD
RT @DavidCookeMD: T5 I do this a lot actually. #LCSM My thinking if you are putting a lot of effort to make the community accurate in its…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T6 What effective methods have you seen for spreading information about #lungcancer or other #cancers? Why are they effec…
Faces of Lung Cancer @LungCancerFaces
RT @DavidCookeMD: T6 What effective methods have you seen for spreading information about #lungcancer or other #cancers? Why are they effec…
Timothy Craig Allen @TimAllenMDJD
RT @biniamkidaneMD: @DavidCookeMD T5: Timely question. A lot of analytic capabilities are built in to media these days. Still not sure they…
diseases_an @diseases_an
RT @DavidCookeMD: T1 What are the strengths of #SoMe in spreading info about best & newer treatments of #lungcancer to patients? #LCSM
Denise Cutlip @dennycee
T6: I set up Info tables anywhere people will let me. Making a point that I’m a 7 ye survivor st 4 when I connect with someone. #lcsm
Janet Freeman-Daily @JFreemanDaily
T6 Some #lungcancer advocacy orgs have created hardcopy materials for distribution in #cancer centers and online stores (e.g., https://t.co/VRVtasvbg2) #LCSM
Christen Gjeldum @GjeldumChristen
RT @dennycee: T6: I set up Info tables anywhere people will let me. Making a point that I’m a 7 ye survivor st 4 when I connect with someo…
Dr. David Tom Cooke @DavidCookeMD
T5 Very old school but effective. #LCSm https://t.co/SeeOYZ2mV0
#LCSM Chat @lcsmchat
#lcsm https://t.co/1Q0UgPUdVC
Heather Hogan @hoganmah
#LCSM T6 - Personal stories, putting a face to the disease in social media and in hard copy makes it more real.
Janet Freeman-Daily @JFreemanDaily
RT @TimAllenMDJD: Let's make this level of patient involvement in patient understanding the norm! #lcsm https://t.co/SCPJvOgOE2
#LCSM Chat @lcsmchat
#lcsm https://t.co/OfHw9nZhFh
Dr. David Tom Cooke @DavidCookeMD
T6 Also old school. But can be effective! #LCSM https://t.co/HpONKOC5fe
#LCSM Chat @lcsmchat
RT @dennycee: T6: I set up Info tables anywhere people will let me. Making a point that I’m a 7 ye survivor st 4 when I connect with someo…
Timothy Craig Allen @TimAllenMDJD
There's no substitute for hearing it from a doctor. That is why trusted social media is so powerful. Getting rural Broadband should be a priority, for the health of all who live in rural areas. They deserve the same excellent diagnosis and treatment as anyone else. #lcsm https://t.co/s5XNC7g38q
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T6 Some #lungcancer advocacy orgs have created hardcopy materials for distribution in #cancer centers and online stores…
Lisa Listengart @lisadlz123
T5 Facebook groups and friends. Trusted people=trusted info #lcsm
Mimi Provenzano @MimiProvenzano
RT @hoganmah: #LCSM T6 - Personal stories, putting a face to the disease in social media and in hard copy makes it more real.
#LCSM Chat @lcsmchat
RT @hoganmah: #LCSM T6 - Personal stories, putting a face to the disease in social media and in hard copy makes it more real.
Janet Freeman-Daily @JFreemanDaily
@DavidCookeMD Measure increase in patients who seek second opinions at major cancer centers #LCSM
Denise Cutlip @dennycee
@DavidCookeMD sometimes old school is the only way to reach that huge % that don’t use #SoMe #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: There's no substitute for hearing it from a doctor. That is why trusted social media is so powerful. Getting rural Broadb…
Timothy Craig Allen @TimAllenMDJD
RT @DavidCookeMD: T6 Also old school. But can be effective! #LCSM https://t.co/HpONKOC5fe
#LCSM Chat @lcsmchat
RT @lisadlz123: T5 Facebook groups and friends. Trusted people=trusted info #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @DavidCookeMD Measure increase in patients who seek second opinions at major cancer centers #LCSM
#LCSM Chat @lcsmchat
RT @dennycee: @DavidCookeMD sometimes old school is the only way to reach that huge % that don’t use #SoMe #lcsm
Timothy Craig Allen @TimAllenMDJD
Our challenge. #lcsm https://t.co/C12gcUHMHo
Dr. David Tom Cooke @DavidCookeMD
T5 #Rural people running for congress are you listening to this! #LCSM @Morse4America @bateson2018 @electroza2018 et al... https://t.co/THjr1eXRAP
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: @DavidCookeMD Measure increase in patients who seek second opinions at major cancer centers #LCSM
Lisa Listengart @lisadlz123
T6 Oops, my last tweet was T6. I stink@twitter... #lcsm
Dr. David Tom Cooke @DavidCookeMD
Time for closing thoughts, fire away! #LCSM
Frank Ingram, MD @Chucktowndoc
T6: the local hospitals here with screening programs in place advertise on TV/radio/SoMe #LCSM
Biniam Kidane @biniamkidaneMD
@DavidCookeMD T6: 1/other than twitter, I am sort of an anachronism so this may reveal some of that bias. Usually I find spreading info is on a spectrum. On one end, methods that are ⬇️volume but high lasting & persona impact (I.e. grassroots small community events). #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: T5 #Rural people running for congress are you listening to this! #LCSM @Morse4America @bateson2018 @electroza2018 et al..…
Timothy Craig Allen @TimAllenMDJD
Attn @AjitPaiFCC #lcsm https://t.co/pPzdVBdeDt
#LCSM Chat @lcsmchat
RT @Chucktowndoc: T6: the local hospitals here with screening programs in place advertise on TV/radio/SoMe #LCSM
#LCSM Chat @lcsmchat
RT @biniamkidaneMD: @DavidCookeMD T6: 1/other than twitter, I am sort of an anachronism so this may reveal some of that bias. Usually I fin…
Janet Freeman-Daily @JFreemanDaily
@lcsmchat If you put the chat hashtag at the end of the tweet, have better chance of avoiding accidental combination of hashtag and tweet text (I learned this the hard way) #LCSM
Anita Figueras @scifiknitter
RT @TimAllenMDJD: There's no substitute for hearing it from a doctor. That is why trusted social media is so powerful. Getting rural Broadb…
Dr. David Tom Cooke @DavidCookeMD
Call me old fashion, but the must figure it out so their patients do not feel rushed, and get their questions answered. #LCSM https://t.co/UbSfIVbdlU
Anita Figueras @scifiknitter
RT @dennycee: @DavidCookeMD sometimes old school is the only way to reach that huge % that don’t use #SoMe #lcsm
Heather Hogan @hoganmah
#LCSM T6- not only an issue in US but a bigger problem trying to spread the word in Canada.
Dr. David Tom Cooke @DavidCookeMD
RT @JFreemanDaily: @lcsmchat If you put the chat hashtag at the end of the tweet, have better chance of avoiding accidental combination of…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @lcsmchat If you put the chat hashtag at the end of the tweet, have better chance of avoiding accidental combination of…
Timothy Craig Allen @TimAllenMDJD
#DeathByAThousandClicks #lcsm https://t.co/hPW8HgE76J
#LCSM Chat @lcsmchat
RT @DavidCookeMD: Call me old fashion, but the must figure it out so their patients do not feel rushed, and get their questions answered. #…
#LCSM Chat @lcsmchat
RT @hoganmah: #LCSM T6- not only an issue in US but a bigger problem trying to spread the word in Canada.
Dr. David Tom Cooke @DavidCookeMD
RT @biniamkidaneMD: @DavidCookeMD T6: 1/other than twitter, I am sort of an anachronism so this may reveal some of that bias. Usually I fin…
Lung Cancer Halflung K Latzka @LungCancerHalfL
Thx @DavidCookeMD for a great chat! Peace out! ✌️#LCSM
Biniam Kidane @biniamkidaneMD
@DavidCookeMD T6: 2/on the other end, high volume & probably not as much of an impact in terms of breadth and depth (eg social media campaigns). Although I must say that #SoMe & #lcsm #lcam have been changing my mind about this
Janet Freeman-Daily @JFreemanDaily
CT: #SoMe is great for #lungcancer support & sharing treatment info, but it doesn't reach everyone. We need more outreach methods! #lcsm
Dr. David Tom Cooke @DavidCookeMD
Ok thanks very much for contributing. We will see you soon with another great #LCSM Chat!
Dr. David Tom Cooke @DavidCookeMD
RT @JFreemanDaily: CT: #SoMe is great for #lungcancer support & sharing treatment info, but it doesn't reach everyone. We need more outreac…
Faces of Lung Cancer @LungCancerFaces
Many thanks to @DavidCookeMD for moderation tonight. Good night to the #LCSM community!
Dr. David Tom Cooke @DavidCookeMD
RT @biniamkidaneMD: @DavidCookeMD T6: 2/on the other end, high volume & probably not as much of an impact in terms of breadth and depth (eg…
Janet Freeman-Daily @JFreemanDaily
Thanks for moderating #LCSM Chat tonight, @DavidCookeMD!
Frank Ingram, MD @Chucktowndoc
Good chat, friends. Time to go be a math tutor for my sixth grader now. Until next time... #LCSM
#LCSM Chat @lcsmchat
RT @biniamkidaneMD: @DavidCookeMD T6: 2/on the other end, high volume & probably not as much of an impact in terms of breadth and depth (eg…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: CT: #SoMe is great for #lungcancer support & sharing treatment info, but it doesn't reach everyone. We need more outreac…
Timothy Craig Allen @TimAllenMDJD
@DavidCookeMD FTW #lcsm https://t.co/wREHQ85o8H
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: CT: #SoMe is great for #lungcancer support & sharing treatment info, but it doesn't reach everyone. We need more outreac…
Timothy Craig Allen @TimAllenMDJD
It has been a privilege to participate. #lcsm https://t.co/Jg5wYO9CHR
Biniam Kidane @biniamkidaneMD
@JFreemanDaily @DavidCookeMD Thanks @DavidCookeMD #lcsm
Anita Figueras @scifiknitter
Thank you @DavidCookeMD and everyone else for another solid chat! #lcsm
Janet Freeman-Daily @JFreemanDaily
Tonight’s #LCSM Chat transcript "Expanding the web of knowledge in #lungcancer” is at https://t.co/QjcaJXa0qh
Dr. David Tom Cooke @DavidCookeMD
RT @JFreemanDaily: Tonight’s #LCSM Chat transcript "Expanding the web of knowledge in #lungcancer” is at https://t.co/QjcaJXa0qh
Timothy Craig Allen @TimAllenMDJD
RT @JFreemanDaily: Tonight’s #LCSM Chat transcript "Expanding the web of knowledge in #lungcancer” is at https://t.co/QjcaJXa0qh
Brendon Stiles @BrendonStilesMD
With a legend of lung cancer patient advocacy, Don Stranathan, @DeptofDefense LCRP review. Loving the science and the role of patients/advocates. #lcsm https://t.co/Bosu2OWvmj
Wafik S. El-Deiry, MD, PhD, FACP @weldeiry
The latest The Cancer Plus Daily! https://t.co/DKcEPXCZM7 Thanks to @TheLancetOncol @UppityCancerP @CitizenCohn #cancer #leadership
#LCSM content from Twitter.