#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
Profile | Tweet |
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Denise Cutlip @dennycee Good evening all Michigan checking in #lcsm | |
Janet Freeman-Daily @JFreemanDaily Welcome to tonight's #LCSM Chat! Our topic is "2020--Wild Year for #LungCancer." More info on @lcsmchat Website https://t.co/wTXMYm18WA | |
Nicolas Marcoux MD, FRCPC @NickMarcouxMD Wow! Great #GEOQ conference on lung cancer with amazing speakers @BenjaminBesseMD @ChristianRolfo @DavidHongMD and Pasi Jänne! Thanks to the the organizers for inviting me as a moderator. Can’t wait for next year! @NormandBlais @QCROC #lcsm | |
#LCSM Chat @lcsmchat @dennycee Hi Denzie #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "2020--Wild Year for #LungCancer." More info on @lcsmchat Website https://t.co/wTXMYm18WA | |
Janet Freeman-Daily @JFreemanDaily We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM | |
Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily (writer, science geek, #lungcancer patient/research advocate). https://t.co/raUoI26zfQ #LCSM | |
Deb Smith 🌻🟧 @debsmithbeach Hi, Deb checking in from NH. #LCSM | |
Faces of Lung Cancer @LungCancerFaces Deana here in windy Los Angeles. I’ll be tweeting from the @lcsmchat account tonight. #lcsm | |
Denise Cutlip @dennycee @lcsmchat @dennycee hello my dear friend! #lcsm | |
Dave Bjork @bjork5 @JFreemanDaily Hey friends! Dave Bjork here in Boston. #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM | |
Jill Feldman @jillfeldman4 Hello everyone, just checking in from Illinois. I may be a bit distracted as I'm watching the Jayhawks play with the family ...#itsafamilything #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily (writer, science geek, #lungcancer patient/research advocate). https://t.co/raUoI26zfQ #LCSM | |
#LCSM Chat @lcsmchat @debsmithbeach Hey Deb #lcsm | |
#LCSM Chat @lcsmchat @bjork5 @JFreemanDaily Hi Dave #lcsm | |
Janet Freeman-Daily @JFreemanDaily If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb | |
#LCSM Chat @lcsmchat @jillfeldman4 Hey Jill #lcsm | |
Denise Cutlip @dennycee RT @lcsmchat: @debsmithbeach Hey Deb #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb | |
Kristin Ito @KAdvocate_LCAM Warm greetings all! Kristin here joining from Denver, CO #LCSM ...made it just in time and even with a glass of wine ;) | |
Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @JFreemanDaily Multi-tasking on a community menopause webinar. It's not helpful at all and I'm spending more time explaining via Zoom chat that mammography does not, cannot and will not prevent breast cancer... #lcsm | |
kristen kimball @KimballKristen Kris (Kimball) from Boston, hello everyone. #LCSM | |
#LCSM Chat @lcsmchat @KimballKristen Hi Kris #lcsm | |
Inspire @InspireIsHealth Hello to #LCSM, John Novack here from Inspire, checking in while keeping an eye on the ongoing Medicine X conference. | |
#LCSM Chat @lcsmchat @coffeemommy @JFreemanDaily Hey Stacey #lcsm | |
Frank Ingram, MD @Chucktowndoc Ingram here. Community pathologist in the Carolinas. Good evening, friends. #LCSM | |
#LCSM Chat @lcsmchat @KAdvocate_LCAM Hello Kristin #lcsm | |
Nancy Marquina @Nmarquina80 Hello everyone #lcsm | |
Janet Freeman-Daily @JFreemanDaily Glad folks are taking time to join #LCSM Chat tonight--December is a notoriously slow month for healthcare tweetchats. | |
Tom Jablonski @tomjabbo5 @KimballKristen Hey Kris, I’m also in Boston #LCSM | |
#LCSM Chat @lcsmchat @teaminspire Welcome John #lcsm | |
#LCSM Chat @lcsmchat @Chucktowndoc Welcome Dr Ingram #lcsm | |
Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them. If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience | |
#LCSM Chat @lcsmchat @Nmarquina80 Hi Nancy #lcsm | |
#LCSM Chat @lcsmchat @tomjabbo5 @KimballKristen Hi Tom #lcsm | |
Wear a mask & donate to Lungevity @cacowenclan Shannon from Cali new to it will be figuring it out as I go #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Glad folks are taking time to join #LCSM Chat tonight--December is a notoriously slow month for healthcare tweetchats. | |
Janet Freeman-Daily @JFreemanDaily Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them. If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience | |
Denise Cutlip @dennycee One good thing about tweet chats? No cameras! #lcsm | |
Matthew Steliga MD FACS @SteligaMD @JFreemanDaily will be following along the chat, thank you #LCSM | |
#LCSM Chat @lcsmchat @cacowenclan Hi Shannon! Is it windy where you are? #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Note: Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM | |
Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @JFreemanDaily When are they going to fix that I wonder? It's only been YEARS that we can handle 280 in a tweet. #lcsm | |
#LCSM Chat @lcsmchat @SteligaMD @JFreemanDaily Welcome Dr Steliga #lcsm | |
#LCSM Chat @lcsmchat RT @coffeemommy: @JFreemanDaily When are they going to fix that I wonder? It's only been YEARS that we can handle 280 in a tweet. #lcsm | |
Janet Freeman-Daily @JFreemanDaily I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM | |
Janet Freeman-Daily @JFreemanDaily We’ll start with Topic T1 in a minute … #LCSM | |
KC Dill @kasedill Hello from the suburbs of Houston #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: We’ll start with Topic T1 in a minute … #LCSM | |
kristen kimball @KimballKristen Hello Tom #lcsm | |
KRASKickers @KRASKickers @JFreemanDaily @lcsmchat #LCSM hi all! Terri here multi-tasking | |
A/Prof Gavin Wright @Clavikul RT @TOGAANZ: In 2012-2016, 5-year relative survival rate from #lungcancer was 18.6% compared to 69.2% for all cancers combined. TOGA members are committed to changing this statistic through design & conduct of clinical trials https://t.co/Z8tLeIqEoV #TOGAANZ #TOGAlungcancer #LCSM https://t.co/KHL126c0XF | |
Janet Freeman-Daily @JFreemanDaily We've all been newbies at some point. Remember to include #LCSM in all your tweets so we'll see them in the chat! | |
kristen kimball @KimballKristen @tomjabbo5 Oops out of practice. Will say hello, Tom, again in the right place #lcsm | |
Janet Freeman-Daily @JFreemanDaily T1: How did you acknowledge Lung Cancer Awareness Month (#LCAM) this November? #LCSM | |
#LCSM Chat @lcsmchat @kasedill Welcome! #lcsm | |
Laura Greco @lgreco_ny Laura here from upstate NY #lcsm | |
#LCSM Chat @lcsmchat @kRasKickers @JFreemanDaily Hey Terri #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: We've all been newbies at some point. Remember to include #LCSM in all your tweets so we'll see them in the chat! | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: How did you acknowledge Lung Cancer Awareness Month (#LCAM) this November? #LCSM | |
Janet Freeman-Daily @JFreemanDaily T1: For #LCAM, I was interviewed for an article by yahoo news https://t.co/d3H9iU1Ng8 #LCSM | |
#LCSM Chat @lcsmchat @lgreco_ny Well hello there #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: For #LCAM, I was interviewed for an article by yahoo news https://t.co/d3H9iU1Ng8 #LCSM | |
Denise Cutlip @dennycee T1: shared postings of others Had multiple doctor appointments and asked everyone if the refer patients for LDCTs #lcsm | |
kristen kimball @KimballKristen @lgreco_ny Hi Laura! #Lcsm | |
Laura Greco @lgreco_ny T1: I did an almost daily post on FB; I also tried to have my son's school do an awareness day. It was scuttled due to COVID, but I think it may happen next week. #LCSM | |
Ann Young @AnnYoun46686181 RT @LungProject: As #LCAM comes to a close, we're eager to continue working to raise awareness of #lungcancer and the barriers to care. Thanks to the community for supporting patients and caregivers, and hope that together, we can break down barriers #lcsm | |
Janet Freeman-Daily @JFreemanDaily T1: During #LCAM, I posted info about The ROS1ders (@ros1cancer) patient-driven research projects on Facebook. #LCSM | |
Nancy Marquina @Nmarquina80 T1 posted about lung cancer and provided info! Kept LC awareness picture up all November #lcsm | |
Jill Feldman @jillfeldman4 T1 I dropped the ball and didn't do as much as I would have liked for #LCAM this year. Some posts and educated when I had the opportunity. #LCSM | |
Jill Feldman @jillfeldman4 T1 The @EGFRResisters posted each day on twitter & instagram sharing something about a member of our community #lcsm | |
Austin Peppers @Jalapeno448 Austin from Worcester, MA checking in a little late! #LCSM | |
Janet Freeman-Daily @JFreemanDaily T1: I wasn’t as engaged with #LCAM on social media this year either. My time was tied up in #lungcancer research advocacy work, The ROS1ders @ros1cancer nonprofit projects, #COVID19 research, and staffing the @IASLC STARS program (training LC patient research advocates). #LCSM | |
Wear a mask & donate to Lungevity @cacowenclan T1: it was much more difficult than I expected. I did a couple a couple days apart posting and then several days apart and then towards mid month fizzled out because I felt overwhelmed with putting out the information but also trying not to scare my family since I’m scared #LCSM | |
Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @JFreemanDaily Apologies to the entire #lcsm community because the answer is we had a bit of a family emergency and I simply didn't acknowledge #LCAM enough this year. My goal is to bring the cancer communities together to support & lern from each other. Doing that through @AdvocateCollab T1 | |
#LCSM Chat @lcsmchat RT @dennycee: T1: T1: shared postings of others Had multiple doctor appointments and asked everyone if the refer patients for LDCTs #lcsm | |
#LCSM Chat @lcsmchat RT @lgreco_ny: T1: T1: I did an almost daily post on FB; I also tried to have my son's school do an awareness day. It was scuttled due to COVID, but I think it may happen next week. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: During #LCAM, I posted info about The ROS1ders (@ros1cancer) patient-driven research projects on Facebook. #LCSM | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T1 I dropped the ball and didn't do as much as I would have liked for #LCAM this year. Some posts and educated when I had the opportunity. #LCSM | |
#LCSM Chat @lcsmchat RT @Nmarquina80: T1 posted about lung cancer and provided info! Kept LC awareness picture up all November #lcsm | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T1 The @EGFRResisters posted each day on twitter & instagram sharing something about a member of our community #lcsm | |
#LCSM Chat @lcsmchat @Jalapeno448 Hi Austin #lcsm | |
Janet Freeman-Daily @JFreemanDaily @cacowenclan It's amazingly draining to post something new and interesting on Twitter every single day for a month! #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: I wasn’t as engaged with #LCAM on social media this year either. My time was tied up in #lungcancer research advocacy work, The ROS1ders @ros1cancer nonprofit projects, #COVID19 research, and staffing the @IASLC STARS program (training LC patient research advocates). #LCSM | |
#LCSM Chat @lcsmchat RT @cacowenclan: T1: T1: it was much more difficult than I expected. I did a couple a couple days apart posting and then several days apart and then towards mid month fizzled out because I felt overwhelmed with putting out the information but also trying not to scare my family since I’m scared #LCSM | |
#LCSM Chat @lcsmchat RT @coffeemommy: @JFreemanDaily Apologies to the entire #lcsm community because the answer is we had a bit of a family emergency and I simply didn't acknowledge #LCAM enough this year. My goal is to bring the cancer communities together to support & lern from each other. Doing that through @AdvocateCollab T1 | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @cacowenclan It's amazingly draining to post something new and interesting on Twitter every single day for a month! #LCSM | |
Kristin Ito @KAdvocate_LCAM T1. It was a busy month of advocacy! A couple acknowledgments included: hanging a white ribbon (gift of @heidi_onda ) on my front door. With support, organized a staff meeting to talk about hope and reflect on the mission of the IASLC. #LCSM | |
Dave Bjork @bjork5 @JFreemanDaily T1: I launched a podcast and interviewed @BrendonStilesMD 🙌 #lcsm https://t.co/8DZfZLBP2b | |
Janet Freeman-Daily @JFreemanDaily @coffeemommy @AdvocateCollab No apologies necessary--I think the longer one is a #cancer advocate, the more one becomes involved in projects and has less energy available for awareness posts. #LCSM | |
#LCSM Chat @lcsmchat T1: I’ve gotten away from emphasizing #LCAM as much as years past. Instead, I tweet all year long. -Deana #LCSM | |
#LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T1. It was a busy month of advocacy! A couple acknowledgments included: T1. It was a busy month of advocacy! A couple acknowledgments included: hanging a white ribbon (gift of @heidi_onda ) on my front door. With support, organized a staff meeting to talk about hope and reflect on the mission of the IASLC. #LCSM | |
#LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T1: @JFreemanDaily T1: I launched a podcast and interviewed @BrendonStilesMD 🙌 #lcsm https://t.co/8DZfZLBP2b | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @coffeemommy @AdvocateCollab No apologies necessary--I think the longer one is a #cancer advocate, the more one becomes involved in projects and has less energy available for awareness posts. #LCSM | |
Lung Cancer Sux @LungCancerSux RT @jillfeldman4: T1 I dropped the ball and didn't do as much as I would have liked for #LCAM this year. Some posts and educated when I had the opportunity. #LCSM | |
Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @cacowenclan {{{{hug}}}} It IS overwhelming. #lcsm | |
Wear a mask & donate to Lungevity @cacowenclan I posted on Instagram that automatically posts to Facebook and Twitter but the Twitter is actually a junk post because they have to click and I know most won’t’ and yes very draining #lcsm | |
KC Dill @kasedill T1: Nov is a rough month for me, my focus is usually on my child’s birthday as well as coping with the anniversary of my mother’s death from LC. I hate to admit I usually end up sitting on the sidelines. #LCSM | |
Laura Greco @lgreco_ny RT @bjork5: @JFreemanDaily T1: @JFreemanDaily T1: I launched a podcast and interviewed @BrendonStilesMD 🙌 #lcsm https://t.co/8DZfZLBP2b | |
Laura Greco @lgreco_ny RT @lcsmchat: T1: T1: I’ve gotten away from emphasizing #LCAM as much as years past. Instead, I tweet all year long. -Deana #LCSM | |
Linnea Olson @1111linno #lcsm Howdy. Joining the party late! xoxo Linnea stage IV 'this is not my first rodeo'. | |
Denise Cutlip @dennycee That’s awesome! | |
kristen kimball @KimballKristen @JFreemanDaily T1 Mostly with my anatomy and physiology students. Started class w 5 min abt LC. Told my husband’s story. Told abt early detection, funding issues, stigma. Got some + feedback, Was asked to speak at a sorority’s Zoom cancer vigil, which I did on last night of #LCAM #LCSM | |
#LCSM Chat @lcsmchat @1111linno Hey lady #lcsm | |
Laura Greco @lgreco_ny @JFreemanDaily @lcsmchat @cacowenclan T1: I must admit I was flagging on by the end of the month. Next year I should plan ahead! #LCSM | |
#LCSM Chat @lcsmchat RT @cacowenclan: I posted on Instagram that automatically posts to Facebook and Twitter but the Twitter is actually a junk post because they have to click and I know most won’t’ and yes very draining #lcsm | |
Deb Smith 🌻🟧 @debsmithbeach T1: I used my email signature to share articles and LC info, in my scan update email blast and throughout the month. #LCSM | |
#LCSM Chat @lcsmchat RT @kasedill: T1: T1: Nov is a rough month for me, my focus is usually on my child’s birthday as well as coping with the anniversary of my mother’s death from LC. I hate to admit I usually end up sitting on the sidelines. #LCSM | |
Eric Bernicker @EricBernicker Bernicker here from Houston. I am a Med onc specializing in thoracic oncology. I also just had an MRI and needed medication so methinks I will be lurking and learning and hopefully not tweeting .....#LCSM | |
#LCSM Chat @lcsmchat RT @KimballKristen: @JFreemanDaily T1 Mostly with my anatomy and physiology students. Started class w 5 min abt LC. Told my husband’s story. Told abt early detection, funding issues, stigma. Got some + feedback, Was asked to speak at a sorority’s Zoom cancer vigil, which I did on last night of #LCAM #LCSM | |
Janet Freeman-Daily @JFreemanDaily T2: #LCAM needs to happen ALL year. It's OK (even helpful) to raise awareness for #lungcancer in other months! #LCSM | |
Janet Freeman-Daily @JFreemanDaily Topic T2 is coming up … #LCSM | |
Jill Feldman @jillfeldman4 T1 I was disappointed with the lack of media attention this year! I feel like #LCAM was 'trumped' (pun intended, not political) by COVID and the election #LCSM | |
#LCSM Chat @lcsmchat RT @debsmithbeach: T1: T1: I used my email signature to share articles and LC info, in my scan update email blast and throughout the month. #LCSM | |
kristen kimball @KimballKristen @cacowenclan @tomjabbo5 I think reply any old way! Just put #LCSM in tweet. I just noticed I’d responded to myself rather than Tom! | |
Dave Bjork @bjork5 @JFreemanDaily T1,: ...and I walked around Boston with a white ribbon taking photos in front of @MGHCancerCenter and several pharma companies & research labs lol! #LCSM https://t.co/kSff3mG3Za | |
#LCSM Chat @lcsmchat @EricBernicker Hi Dr Bernicker. Hope your MRI is uneventful. #lcsm | |
Janet Freeman-Daily @JFreemanDaily T2: What 2020 research findings were most important to you? #LCSM | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T1 I was disappointed with the lack of media attention this year! I feel like #LCAM was 'trumped' (pun intended, not political) by COVID and the election #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: #LCAM needs to happen ALL year. It's OK (even helpful) to raise awareness for #lungcancer in other months! #LCSM | |
#LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T1,: @JFreemanDaily T1,: ...and I walked around Boston with a white ribbon taking photos in front of @MGHCancerCenter and several pharma companies & research labs lol! #LCSM https://t.co/kSff3mG3Za | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: What 2020 research findings were most important to you? #LCSM | |
Wear a mask & donate to Lungevity @cacowenclan @coffeemommy It sure can be because you are thinking about how it will affect family to know the stats and other info but knowing they focus on the negative is stressful in itself and then it’s actually regarding what you are going through so yes and that’s why I finally as done #lcsm | |
Crystal @CCuadra8 @JFreemanDaily @lcsmchat I posted #LCAM posts every day across multiple platforms (FB, IG, Twitter) and raised more funds for LUNGevity. Also got some family and friends to write to their congressional reps to try to pass resolutions for #LCAM. Still feels like I could be doing more #LCSM | |
Janet Freeman-Daily @JFreemanDaily @EricBernicker Assuming you just had a brain MRI, may your brain be "unremarkable." #LCSM | |
Austin Peppers @Jalapeno448 T1: I also wasn't as involved as I wanted to be. Between COVID-weirdness, medical school applications, MCAT studying, and a full-time research project/courses, I found myself overwhelmed. But, I have a few ideas brewing for the future! #LCSM | |
#LCSM Chat @lcsmchat RT @CCuadra8: @JFreemanDaily @lcsmchat I posted #LCAM posts every day across multiple platforms (FB, IG, Twitter) and raised more funds for LUNGevity. Also got some family and friends to write to their congressional reps to try to pass resolutions for #LCAM. Still feels like I could be doing more #LCSM | |
Eden Lake @EdenLake @JFreemanDaily T1: Honestly... had a very difficult time balancing grieving my son, trying to stay above water & focusing on advocacy. I made a few posts & was involved in some multi-cancer support chats & tried to have significant discussions about the challenges of #lungcancer funding #LCSM | |
Oligodendrogal🧘 @SallySi09070209 RT @LungProject: Last year, we conducted a follow-up study which found a 6% decrease in hopelessness among #lungcancer patients when diagnosed with the disease. Hope is a powerful part of the patient journey, and is amplified through research & advances in care #lcsm https://t.co/1D37K18Bj0 | |
Wear a mask & donate to Lungevity @cacowenclan @kasedill And that is perfectly fine. #lcsm | |
Nancy Marquina @Nmarquina80 T2 I’ve got to say LC covid patients. Hoping to see positive research and results #lcsm | |
#LCSM Chat @lcsmchat RT @Jalapeno448: T1: T1: I also wasn't as involved as I wanted to be. Between COVID-weirdness, medical school applications, MCAT studying, and a full-time research project/courses, I found myself overwhelmed. But, I have a few ideas brewing for the future! #LCSM | |
#LCSM Chat @lcsmchat RT @EdenLake: @JFreemanDaily T1: @JFreemanDaily T1: Honestly... had a very difficult time balancing grieving my son, trying to stay above water & focusing on advocacy. I made a few posts & was involved in some multi-cancer support chats & tried to have significant discussions about the challenges of #lungcancer funding #LCSM | |
Janet Freeman-Daily @JFreemanDaily T2: New @AmericanCancer report found #lungcancer survival nearly doubled. Screening and new treatments such as targeted therapies and immunotherapy will continue to improve survival! https://t.co/PpunzEdYEo #LCSM | |
Kristin Ito @KAdvocate_LCAM T2: that's tough! one is the advancements for treatment for sclc #LCSM https://t.co/DrS5raEJTH | |
Deb Smith 🌻🟧 @debsmithbeach RT @JFreemanDaily: T2: T2: #LCAM needs to happen ALL year. It's OK (even helpful) to raise awareness for #lungcancer in other months! #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: New @AmericanCancer report found #lungcancer survival nearly doubled. Screening and new treatments such as targeted therapies and immunotherapy will continue to improve survival! https://t.co/PpunzEdYEo #LCSM | |
KRASKickers @KRASKickers #LCSM T2 .. multiple #KRAS drugs are looking viable ... can it be the ‘undruggable’ may have options?! Wow!! | |
Linnea Olson @1111linno #lcsm #2 I actually found the fuss around COVID to be the most important development. Both the rush to telehealth and the extraordinary accrual in vaccine trials. (#compensation) | |
#LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T2: T2: that's tough! one is the advancements for treatment for sclc #LCSM https://t.co/DrS5raEJTH | |
#LCSM Chat @lcsmchat RT @kRasKickers: #LCSM T2 .. multiple #KRAS drugs are looking viable ... can it be the ‘undruggable’ may have options?! Wow!! | |
#LCSM Chat @lcsmchat RT @1111linno: #lcsm #2 I actually found the fuss around COVID to be the most important development. Both the rush to telehealth and the extraordinary accrual in vaccine trials. (#compensation) | |
Wear a mask & donate to Lungevity @cacowenclan @lgreco_ny @JFreemanDaily @lcsmchat I plan to get an app thingy that you can do well in advance etc so it is spread out with all of it then you only need to answer questions that come@up #lcsm I get it | |
#LCSM Chat @lcsmchat RT @cacowenclan: @lgreco_ny @JFreemanDaily @lcsmchat I plan to get an app thingy that you can do well in advance etc so it is spread out with all of it then you only need to answer questions that come@up #lcsm I get it | |
Linnea Olson @1111linno #lcsm #2 We can do what is necessary & urgent when the impact is widespread (COVID vs lung cancer). Not really a contest, right? | |
Janet Freeman-Daily @JFreemanDaily T2: The ADAURA trial and resulting discussion about adjuvant TKIs for Stage III EGFR+ NSCLC. Patient research advocate @jillfeldman4 shared some great insights. https://t.co/L2xhwvl0VN #LCSM | |
Jill Feldman @jillfeldman4 T2 As @christine_lovly said, 'everyone is talking about the lungs' because of COVID. Pretty important research there! #LCSM | |
#LCSM Chat @lcsmchat RT @1111linno: #lcsm #2 We can do what is necessary & urgent when the impact is widespread (COVID vs lung cancer). Not really a contest, right? | |
Jill Feldman @jillfeldman4 T2 It was also a banner year for approvals, but the most impt ones were for #SCLC (1st non IO approval since 1998) & #Meso (2nd systemic tx ever approved & 1st in 16 years) #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: The ADAURA trial and resulting discussion about adjuvant TKIs for Stage III EGFR+ NSCLC. Patient research advocate @jillfeldman4 shared some great insights. https://t.co/L2xhwvl0VN #LCSM | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T2 As @christine_lovly said, 'everyone is talking about the lungs' because of COVID. Pretty important research there! #LCSM | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T2 It was also a banner year for approvals, but the most impt ones were for #SCLC (1st non IO approval since 1998) & #Meso (2nd systemic tx ever approved & 1st in 16 years) #LCSM | |
Laura Greco @lgreco_ny RT @KAdvocate_LCAM: T2: T2: that's tough! one is the advancements for treatment for sclc #LCSM https://t.co/DrS5raEJTH | |
Eden Lake @EdenLake @JFreemanDaily Hi all... Ive been a bit absent, as my son died in August. Been a rough stretch dealing with that & keeping his kids/fiance afloat. Ive missed the connections here though. Im nsclc, surgery in 2016 stage 1-2 at time. Immunotherapy interrupted by covid #lcsm | |
Denise Cutlip @dennycee T2: we learned what can be done with research when you throw a lot of money at it and pay trial participants because of covid #lcsm | |
#LCSM Chat @lcsmchat RT @EdenLake: @JFreemanDaily Hi all... Ive been a bit absent, as my son died in August. Been a rough stretch dealing with that & keeping his kids/fiance afloat. Ive missed the connections here though. Im nsclc, surgery in 2016 stage 1-2 at time. Immunotherapy interrupted by covid #lcsm | |
Eden Lake @EdenLake RT @jillfeldman4: Finally, my thoughts on #ASCO20 ADAURA results. I had to make a blog site to post them! I can't tag everyone involved in the many discussions so please share this important message from a patient @JackWestMD @n8pennell @DrRoyHerbstYale https://t.co/MSkRfTF7KK #LCSM #OncoAlert | |
Laura Greco @lgreco_ny RT @1111linno: #lcsm #2 We can do what is necessary & urgent when the impact is widespread (COVID vs lung cancer). Not really a contest, right? | |
#LCSM Chat @lcsmchat @EdenLake @JFreemanDaily We are so sorry for the loss of your son. xoxox #lcsm | |
Inspire @InspireIsHealth RT @JFreemanDaily: T2: T2: The ADAURA trial and resulting discussion about adjuvant TKIs for Stage III EGFR+ NSCLC. Patient research advocate @jillfeldman4 shared some great insights. https://t.co/L2xhwvl0VN #LCSM | |
Janet Freeman-Daily @JFreemanDaily We’ll shift to Topic T3 next … #LCSM | |
#LCSM Chat @lcsmchat RT @dennycee: T2: T2: we learned what can be done with research when you throw a lot of money at it and pay trial participants because of covid #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: We’ll shift to Topic T3 next … #LCSM | |
Eden Lake @EdenLake RT @JFreemanDaily: T2: T2: #LCAM needs to happen ALL year. It's OK (even helpful) to raise awareness for #lungcancer in other months! #LCSM | |
Lung Cancer Sux @LungCancerSux Setting #LCAM goal of at least once a week for the coming year #LCSM | |
#LCSM Chat @lcsmchat RT @LungCancerSux: Setting #LCAM goal of at least once a week for the coming year #LCSM | |
KC Dill @kasedill @EdenLake @JFreemanDaily My sincere condolences Eden. #LCSM | |
kristen kimball @KimballKristen @EdenLake @JFreemanDaily T1 I agree November is difficult-it’s the second Thanksgiving without my husband. That was our holiday, we had a big gathering every year. I miss him so much and sometimes it was hard to keep trying to do something to keep the advocacy going. #LCSM | |
#LCSM Chat @lcsmchat RT @KimballKristen: @EdenLake @JFreemanDaily T1 I agree November is difficult-it’s the second Thanksgiving without my husband. That was our holiday, we had a big gathering every year. I miss him so much and sometimes it was hard to keep trying to do something to keep the advocacy going. #LCSM | |
Janet Freeman-Daily @JFreemanDaily T3: What new treatments were approved for lung cancer in 2020? #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: What new treatments were approved for lung cancer in 2020? #LCSM | |
kristen kimball @KimballKristen This. #LCSM | |
Janet Freeman-Daily @JFreemanDaily T3: In 2020, @FDA Oncology #lungcancer approvals included 3 new treatment and 8 expansions of existing treatments. https://t.co/EFjHvRnQH6 #LCSM | |
Dave Bjork @bjork5 @JFreemanDaily T2: I was psyched to see the approval of Gavreto. Been following @BlueprintMeds for a while and they are super committed people! @gene @roche @genentech @martamurcia1 @christine_lovly #lcsm | |
#LCSM Chat @lcsmchat RT @KimballKristen: This. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: In 2020, @FDA Oncology #lungcancer approvals included 3 new treatment and 8 expansions of existing treatments. https://t.co/EFjHvRnQH6 #LCSM | |
Wear a mask & donate to Lungevity @cacowenclan @EdenLake @JFreemanDaily May you find some peace #lcsm | |
Alicia C. Staley @stales RT @1111linno: #lcsm #2 I actually found the fuss around COVID to be the most important development. Both the rush to telehealth and the extraordinary accrual in vaccine trials. (#compensation) | |
#LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T2: @JFreemanDaily T2: I was psyched to see the approval of Gavreto. Been following @BlueprintMeds for a while and they are super committed people! @gene @roche @genentech @martamurcia1 @christine_lovly #lcsm | |
Vondur @VondurGaming RT @LungProject: As #LCAM comes to a close, we're eager to continue working to raise awareness of #lungcancer and the barriers to care. Thanks to the community for supporting patients and caregivers, and hope that together, we can break down barriers #lcsm | |
Alicia C. Staley @stales RT @JFreemanDaily: T1: T1: How did you acknowledge Lung Cancer Awareness Month (#LCAM) this November? #LCSM | |
Dave Bjork @bjork5 #LCSM #lungcancer #research | |
Janet Freeman-Daily @JFreemanDaily T3: New TKI oral treatments were approved for NSCLC genomic alterations in exon 14 skipping mutations and RET fusions. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: New TKI oral treatments were approved for NSCLC genomic alterations in exon 14 skipping mutations and RET fusions. #LCSM | |
Narjust Florez, MD, FASCO @NarjustFlorezMD @JFreemanDaily @lcsmchat Well. May 2020 will go on history with so many approvals. #LCSM | |
Kristin Ito @KAdvocate_LCAM T3: 👏👏👏 #LCSM | |
Narjust Florez, MD, FASCO @NarjustFlorezMD @JFreemanDaily Yes! 100%. Lung cancer doesn't stop the rest of the year #LCSM | |
Janet Freeman-Daily @JFreemanDaily @NarjustDumaMD @lcsmchat Good to see you here, Narjust! #LCSM | |
Linnea Olson @1111linno #lcsm T whatever: I just did a quick audit of the days since lung cancer has been EVERY DAY for me (dx 4/5/2005): 5,721 days. That's a lot of fucking days. | |
Eden Lake @EdenLake RT @JFreemanDaily: T3: T3: In 2020, @FDA Oncology #lungcancer approvals included 3 new treatment and 8 expansions of existing treatments. https://t.co/EFjHvRnQH6 #LCSM | |
Jill Feldman @jillfeldman4 T3 In 2020, 11 new treatment approaches were approved for lung cancer by the FDA. That has never been seen in the history of oncology for any cancer! Upal Basu Roy made this slide #LCSM https://t.co/shWauv9EkV | |
Narjust Florez, MD, FASCO @NarjustFlorezMD @jillfeldman4 @lcsmchat The meso data has given our pts more options and that is so important #LCSM | |
#LCSM Chat @lcsmchat RT @NarjustDumaMD: @JFreemanDaily @lcsmchat Well. May 2020 will go on history with so many approvals. #LCSM | |
Crystal @CCuadra8 RT @jillfeldman4: T3 In 2020, 11 new treatment approaches were approved for lung cancer by the FDA. That has never been seen in the history of oncology for any cancer! Upal Basu Roy made this slide #LCSM https://t.co/shWauv9EkV | |
Matthew Steliga MD FACS @SteligaMD RT @jillfeldman4: T3 In 2020, 11 new treatment approaches were approved for lung cancer by the FDA. That has never been seen in the history of oncology for any cancer! Upal Basu Roy made this slide #LCSM https://t.co/shWauv9EkV | |
#LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T3: T3: 👏👏👏 #LCSM | |
Jill Feldman @jillfeldman4 RT @JFreemanDaily: T2: T2: The ADAURA trial and resulting discussion about adjuvant TKIs for Stage III EGFR+ NSCLC. Patient research advocate @jillfeldman4 shared some great insights. https://t.co/L2xhwvl0VN #LCSM | |
#LCSM Chat @lcsmchat RT @1111linno: #lcsm T whatever: I just did a quick audit of the days since lung cancer has been EVERY DAY for me (dx 4/5/2005): #lcsm T whatever: I just did a quick audit of the days since lung cancer has been EVERY DAY for me (dx 4/5/2005): 5,721 days. That's a lot of fucking days. | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T3 In 2020, 11 new treatment approaches were approved for lung cancer by the FDA. That has never been seen in the history of oncology for any cancer! Upal Basu Roy made this slide #LCSM https://t.co/shWauv9EkV | |
#LCSM Chat @lcsmchat RT @NarjustDumaMD: @jillfeldman4 @lcsmchat The meso data has given our pts more options and that is so important #LCSM | |
Wear a mask & donate to Lungevity @cacowenclan T2 I read too many things that make@me@worry we chose the wrong tax path but then Isabel to let it go as I am already on the path and will decide future decisions in the future with T3 #LCSM | |
Denise Cutlip @dennycee There was a time about 3 mos ago when new treatments or new uses were being approved weekly #lcsm | |
kristen kimball @KimballKristen @JFreemanDaily @AmericanCancer T2 so excited about @LeciaSequist’s work on early detection! We need #lungscreening for ALL, just like the 3 next most common cancers have. #LCSM | |
Janet Freeman-Daily @JFreemanDaily Holidays are difficult for many who have lost loved ones to #cancer or any other cause. Then combine it with the lost of the light (in N Hemisphere), risks and restrictions of #COVID19, and a contentious election ... a really tough season for many. #LCSM | |
Eden Lake @EdenLake @1111linno May there be many more! World needs your energy & voice #lcsm | |
Narjust Florez, MD, FASCO @NarjustFlorezMD @CCuadra8 @lcsmchat @JFreemanDaily Thank you! #lcsm | |
Dave Bjork @bjork5 This!!👇 #lcsm | |
#LCSM Chat @lcsmchat RT @dennycee: There was a time about 3 mos ago when new treatments or new uses were being approved weekly #lcsm | |
#LCSM Chat @lcsmchat RT @KimballKristen: @JFreemanDaily @AmericanCancer T2 so excited about @LeciaSequist’s work on early detection! We need #lungscreening for ALL, just like the 3 next most common cancers have. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Holidays are difficult for many who have lost loved ones to #cancer or any other cause. Then combine it with the lost of the light (in N Hemisphere), risks and restrictions of #COVID19, and a contentious election ... a really tough season for many. #LCSM | |
Inspire @InspireIsHealth RT @jillfeldman4: T3 In 2020, 11 new treatment approaches were approved for lung cancer by the FDA. That has never been seen in the history of oncology for any cancer! Upal Basu Roy made this slide #LCSM https://t.co/shWauv9EkV | |
kristen kimball @KimballKristen T2 Waiting for the day when we all can get #lungscreening as routine health care. #lcsm | |
Narjust Florez, MD, FASCO @NarjustFlorezMD @1111linno @lcsmchat That calculation puts so many things on the right perspective #lcsm | |
#LCSM Chat @lcsmchat RT @KimballKristen: T2 Waiting for the day when we all can get #lungscreening as routine health care. #lcsm | |
Wear a mask & donate to Lungevity @cacowenclan @KimballKristen @JFreemanDaily @AmericanCancer @LeciaSequist Totally agree #lcsm | |
Eric Bernicker @EricBernicker My wife the non-radiologist always tells me my brain as -at least functionally-- is pedestrianly unremarkable 😂😂 | |
Austin Peppers @Jalapeno448 RT @jillfeldman4: T3 In 2020, 11 new treatment approaches were approved for lung cancer by the FDA. That has never been seen in the history of oncology for any cancer! Upal Basu Roy made this slide #LCSM https://t.co/shWauv9EkV | |
Linnea Olson @1111linno #lcsm T3: More treatment options is a win. But until there is a cure for lung cancer, every option represents another dead end. #tired | |
#LCSM Chat @lcsmchat RT @1111linno: #lcsm T3: #lcsm T3: More treatment options is a win. But until there is a cure for lung cancer, every option represents another dead end. #tired | |
Eden Lake @EdenLake @JFreemanDaily I think we are all getting our arses kicked in one way or another (or many) this year. If there is anything to be thankful for, its that so many of us are still standing at all. #lcsm | |
Jill Feldman @jillfeldman4 T3 The USPSTF recommended expanded guidelines for screening. Could lead to 13% greater reduction in lung cancer deaths compared to the current guideline & could narrow racial disparities associated with the screening eligibility. Have a way to go but step in right direction #LCSM | |
Eden Lake @EdenLake RT @KimballKristen: @JFreemanDaily @AmericanCancer T2 so excited about @LeciaSequist’s work on early detection! We need #lungscreening for ALL, just like the 3 next most common cancers have. #LCSM | |
Janet Freeman-Daily @JFreemanDaily @1111linno #LCSM Dead ends in treatment are indeed discouraging. But more time to live well is still a win for many. | |
#LCSM Chat @lcsmchat RT @EdenLake: @JFreemanDaily I think we are all getting our arses kicked in one way or another (or many) this year. If there is anything to be thankful for, its that so many of us are still standing at all. #lcsm | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T3 The USPSTF recommended expanded guidelines for screening. Could lead to 13% greater reduction in lung cancer deaths compared to the current guideline & could narrow racial disparities associated with the screening eligibility. Have a way to go but step in right direction #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @1111linno #LCSM Dead ends in treatment are indeed discouraging. But more time to live well is still a win for many. | |
Wear a mask & donate to Lungevity @cacowenclan @1111linno Hugs, you have been fighting for a long long time. #lcsm | |
Narjust Florez, MD, FASCO @NarjustFlorezMD @jillfeldman4 @lcsmchat While true I am worried about the health disparities that the current pandemic has widen due to loss of insurance and jobs. #LCSM | |
Janet Freeman-Daily @JFreemanDaily Topic T4 is coming up … #LCSM | |
Jill Feldman @jillfeldman4 T3 There are many other promising research studies underway as new data for KRAS, HER2 and others are emerging #LCSM | |
#LCSM Chat @lcsmchat RT @NarjustDumaMD: @jillfeldman4 @lcsmchat While true I am worried about the health disparities that the current pandemic has widen due to loss of insurance and jobs. #LCSM | |
Laura Greco @lgreco_ny RT @1111linno: #lcsm T3: More treatment options is a win. But until there is a cure for lung cancer, every option represents another dead end. #tired It is SO tiring. | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Topic T4 is coming up … #LCSM | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T3 There are many other promising research studies underway as new data for KRAS, HER2 and others are emerging #LCSM | |
Eden Lake @EdenLake @KimballKristen @JFreemanDaily @AmericanCancer @LeciaSequist Agreed! A friend who i saw a couple months ago has the most terrifying chronic cough and dr won't even order chest xray... despite his 40 year smoking history. He had no idea low dose ct was a thing. Or that he fit parameters. I nag him 2x a week to demand or change drs #lcsm | |
#LCSM Chat @lcsmchat RT @lgreco_ny: RT @1111linno: #lcsm T3: RT @1111linno: #lcsm T3: More treatment options is a win. But until there is a cure for lung cancer, every option represents another dead end. #tired It is SO tiring. | |
Tim Broyle, MD @BroyleTim RT @jillfeldman4: T3 The USPSTF recommended expanded guidelines for screening. Could lead to 13% greater reduction in lung cancer deaths compared to the current guideline & could narrow racial disparities associated with the screening eligibility. Have a way to go but step in right direction #LCSM | |
#LCSM Chat @lcsmchat RT @EdenLake: @KimballKristen @JFreemanDaily @AmericanCancer @LeciaSequist Agreed! A friend who i saw a couple months ago has the most terrifying chronic cough and dr won't even order chest xray... despite his 40 year smoking history. He had no idea low dose ct was a thing. Or that he fit parameters. I nag him 2x a week to demand or change drs #lcsm | |
Janet Freeman-Daily @JFreemanDaily T4: How else did lung cancer care change in 2020 (cough *#COVID19* cough)? #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: How else did lung cancer care change in 2020 (cough *#COVID19* cough)? #LCSM | |
Narjust Florez, MD, FASCO @NarjustFlorezMD @KimballKristen @lcsmchat We are applying for a new grant to increase provider awareness and icurrent work flow practices about lung ca screening so... fingers crossed #lcsm | |
#LCSM Chat @lcsmchat RT @NarjustDumaMD: @KimballKristen @lcsmchat We are applying for a new grant to increase provider awareness and icurrent work flow practices about lung ca screening so... fingers crossed #lcsm | |
Eden Lake @EdenLake Blessed be... we need more movement in this direction #lcsm | |
Janet Freeman-Daily @JFreemanDaily T4: 2020 brought increase in collaborations between professional orgs, #lungcancer advocacy organizations, patients, and more tackling the lack of reflexive NSCLC #biomarker testing. @NLCRTNews white paper here: https://t.co/Q46tY6ujJM #LCSM | |
Inspire @InspireIsHealth RT @JFreemanDaily: T4: T4: 2020 brought increase in collaborations between professional orgs, #lungcancer advocacy organizations, patients, and more tackling the lack of reflexive NSCLC #biomarker testing. @NLCRTNews white paper here: https://t.co/Q46tY6ujJM #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: 2020 brought increase in collaborations between professional orgs, #lungcancer advocacy organizations, patients, and more tackling the lack of reflexive NSCLC #biomarker testing. @NLCRTNews white paper here: https://t.co/Q46tY6ujJM #LCSM | |
MET Crusaders @METCrusaders @NarjustDumaMD @lgreco_ny And better brain coverage! #lcsm | |
Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @NarjustDumaMD @jillfeldman4 @lcsmchat THIS! Screenings are down across all cancer types. Unfortunately that will translate to diagnoses at later stages in the coming year... #lcsm (impacting #crcsm #gyncsm and #bcsm too!) | |
Austin Peppers @Jalapeno448 #LCSM T3. Not necessarily a new "treatment," but was excited to see a liquid biopsy get FDA approval. Still a long way to go, but hopefully this paves the road to less invasive diagnostic procedures! https://t.co/6rkJDbWUZL | |
Kristin Ito @KAdvocate_LCAM @NarjustDumaMD @lcsmchat @KimballKristen Fingers and toes are crossed! #LCSM | |
Jill Feldman @jillfeldman4 T4 Telemed. I worry about the digital divide, but hopefully it is here to stay for those it benefits #LCSM | |
#LCSM Chat @lcsmchat RT @coffeemommy: @NarjustDumaMD @jillfeldman4 @lcsmchat THIS! Screenings are down across all cancer types. Unfortunately that will translate to diagnoses at later stages in the coming year... #lcsm (impacting #crcsm #gyncsm and #bcsm too!) | |
#LCSM Chat @lcsmchat RT @Jalapeno448: #LCSM T3. Not necessarily a new "treatment," but was excited to see a liquid biopsy get FDA approval. Still a long way to go, but hopefully this paves the road to less invasive diagnostic procedures! https://t.co/6rkJDbWUZL | |
Linnea Olson @1111linno #lcsm t4: If you want me to shut up, you're going to have to change your twitter handle :) Truth hurts. I represent the hope but also the hurdle. This is hard. | |
Wear a mask & donate to Lungevity @cacowenclan @EdenLake @KimballKristen @JFreemanDaily @AmericanCancer @LeciaSequist I can’t stand that Drs deny X-rays. He should change to a more progressive dr for sure. I wish my Dr had sent me for one the year before I was diagnosed but at least he did it when all my blood tests came out fine. #lcsm | |
Janet Freeman-Daily @JFreemanDaily T4: International conferences for #cancer, #lungcancer, #COVID19 and more went virtual, enabling access for many more participants (and often allowed patients to attend for FREE). #LCSM | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T4 Telemed. I worry about the digital divide, but hopefully it is here to stay for those it benefits #LCSM | |
Denise Cutlip @dennycee New to me was the MRI guided linear accelerator Way cool #lcsm | |
Tim Broyle, MD @BroyleTim @jillfeldman4 @NarjustDumaMD @lcsmchat We saw declines in cervical, colorectal, breast cancer screenings during the 2008-2009 financial crisis, not just from those who lost insurance, but from the insured as well (why pay a screening copay if I’m worried about my money?). #covid19 effects will be more severe. #LCSM | |
Laura Greco @lgreco_ny T4: Some loosening up of office visit requirements. Was really nice not to have to travel 3.5 hours each way quite as much after COVID. #LCSM | |
Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @lgreco_ny Good to "see" you! 💗 #lcsm | |
#LCSM Chat @lcsmchat RT @gifuoh: @jillfeldman4 @NarjustDumaMD @lcsmchat We saw declines in cervical, colorectal, breast cancer screenings during the 2008-2009 financial crisis, not just from those who lost insurance, but from the insured as well (why pay a screening copay if I’m worried about my money?). #covid19 effects will be more severe. #LCSM | |
Kristin Ito @KAdvocate_LCAM @JFreemanDaily You took the tweet right out of my fingers? #LCSM | |
Dave Bjork @bjork5 #lcsm #collaboration | |
#LCSM Chat @lcsmchat RT @1111linno: #lcsm t4: #lcsm t4: If you want me to shut up, you're going to have to change your twitter handle :) Truth hurts. I represent the hope but also the hurdle. This is hard. | |
Laura Greco @lgreco_ny @1111linno And the reality is, the longer you survive, the harder it is. #lcsm | |
Jill Feldman @jillfeldman4 RT @JFreemanDaily: T4: T4: 2020 brought increase in collaborations between professional orgs, #lungcancer advocacy organizations, patients, and more tackling the lack of reflexive NSCLC #biomarker testing. @NLCRTNews white paper here: https://t.co/Q46tY6ujJM #LCSM | |
#LCSM Chat @lcsmchat RT @cacowenclan: @EdenLake @KimballKristen @JFreemanDaily @AmericanCancer @LeciaSequist I can’t stand that Drs deny X-rays. He should change to a more progressive dr for sure. I wish my Dr had sent me for one the year before I was diagnosed but at least he did it when all my blood tests came out fine. #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: International conferences for #cancer, #lungcancer, #COVID19 and more went virtual, enabling access for many more participants (and often allowed patients to attend for FREE). #LCSM | |
Janet Freeman-Daily @JFreemanDaily T4: #COVID19 disrupted #lungcancer screening, diagnosis, treatment, and #clinicaltrials, resulting in fewer diagnoses and more later-stage diagnoses. #LCSM | |
#LCSM Chat @lcsmchat RT @dennycee: New to me was the MRI guided linear accelerator Way cool #lcsm | |
#LCSM Chat @lcsmchat RT @lgreco_ny: T4: T4: Some loosening up of office visit requirements. Was really nice not to have to travel 3.5 hours each way quite as much after COVID. #LCSM | |
Crystal @CCuadra8 @JFreemanDaily T4: Diagnose the week before Covid shutdowns started. Had an incident of pneumonitis and had to rule out Covid before I could get care. Test results took 8 days. It was awful. Also positive staff at one facility changed how appointments run. #LCSM | |
Deb Smith 🌻🟧 @debsmithbeach @JFreemanDaily T4: In the spring, I had to wait a month to have biopsy and SBRT for mets to adrenal gland because of staffing issues. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: #COVID19 disrupted #lungcancer screening, diagnosis, treatment, and #clinicaltrials, resulting in fewer diagnoses and more later-stage diagnoses. #LCSM | |
#LCSM Chat @lcsmchat RT @CCuadra8: @JFreemanDaily T4: @JFreemanDaily T4: Diagnose the week before Covid shutdowns started. Had an incident of pneumonitis and had to rule out Covid before I could get care. Test results took 8 days. It was awful. Also positive staff at one facility changed how appointments run. #LCSM | |
kristen kimball @KimballKristen Oh, yes. #LCSM | |
#LCSM Chat @lcsmchat RT @debsmithbeach: @JFreemanDaily T4: @JFreemanDaily T4: In the spring, I had to wait a month to have biopsy and SBRT for mets to adrenal gland because of staffing issues. #LCSM | |
Janet Freeman-Daily @JFreemanDaily T4: #COVID19 enabled greater #telehealth access and prompted @US_FDA to allow more remote participation strategies in #clinicaltrials. #LCSM | |
Wear a mask & donate to Lungevity @cacowenclan T4 Ditto👇When you have to drive a distance it’s convenient for some visits #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: #COVID19 enabled greater #telehealth access and prompted @US_FDA to allow more remote participation strategies in #clinicaltrials. #LCSM | |
#LCSM Chat @lcsmchat RT @cacowenclan: T4 Ditto👇When you have to drive a distance it’s convenient for some visits #lcsm | |
Crystal @CCuadra8 @JFreemanDaily @lcsmchat This was excellent. I was able to attend events that I would likely had not been able to. #lcsm | |
Dave Bjork @bjork5 Yes! Very exciting. @FoundationATCG @lcrf_org @PritiHegde @cindy_perettie #LCSM | |
Kristin Ito @KAdvocate_LCAM T4: we've seen a shift of some giants in research and care move into Pharma. I hope/know their expertise will bring movement. #LCSM | |
Janet Freeman-Daily @JFreemanDaily @KAdvocate_LCAM Sorry 'bout that #LCSM | |
Mark B In SD @MomsOopsBaby RT @1111linno: #lcsm Howdy. Joining the party late! xoxo Linnea stage IV 'this is not my first rodeo'. | |
Eden Lake @EdenLake @JFreemanDaily T4: my scans were delayed at peak of covid in nyc. Immunotherapy is on hold. Scans (july) are for 1st time clear but blood is all wrong. Further investigation on hold cuz covid & travel challenging. Lost insurance Nov so PET scan a definite no go. Scary time & Im not alone #lcsm | |
Jill Feldman @jillfeldman4 T4 The part of care I hate is that I can't give my doctors and nurses a hug. It feels weird. I'm a hugger. #LCSM | |
Janet Freeman-Daily @JFreemanDaily Last topic T5 is on the way … #LCSM | |
Denise Cutlip @dennycee @lgreco_ny @1111linno the longer we survive the more long term side effects For me that’s chemo deposits in retina causing sight loss #lcsm | |
Wear a mask & donate to Lungevity @cacowenclan @CCuadra8 @JFreemanDaily Wow, that would be so beyond frustrating #lcsm | |
#LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T4: T4: we've seen a shift of some giants in research and care move into Pharma. I hope/know their expertise will bring movement. #LCSM | |
Matthew Steliga MD FACS @SteligaMD RT @jillfeldman4: T3 The USPSTF recommended expanded guidelines for screening. Could lead to 13% greater reduction in lung cancer deaths compared to the current guideline & could narrow racial disparities associated with the screening eligibility. Have a way to go but step in right direction #LCSM | |
Laura Greco @lgreco_ny RT @jillfeldman4: T3 In 2020, 11 new treatment approaches were approved for lung cancer by the FDA. That has never been seen in the history of oncology for any cancer! Upal Basu Roy made this slide #LCSM https://t.co/shWauv9EkV | |
#LCSM Chat @lcsmchat RT @EdenLake: @JFreemanDaily T4: @JFreemanDaily T4: my scans were delayed at peak of covid in nyc. Immunotherapy is on hold. Scans (july) are for 1st time clear but blood is all wrong. Further investigation on hold cuz covid & travel challenging. Lost insurance Nov so PET scan a definite no go. Scary time & Im not alone #lcsm | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T4 The part of care I hate is that I can't give my doctors and nurses a hug. It feels weird. I'm a hugger. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Last topic T5 is on the way … #LCSM | |
#LCSM Chat @lcsmchat RT @dennycee: @lgreco_ny @1111linno the longer we survive the more long term side effects For me that’s chemo deposits in retina causing sight loss #lcsm | |
Janet Freeman-Daily @JFreemanDaily T5: What are your hopes for the lung cancer community in 2021? [everyone must have something to say about this...] #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: What are your hopes for the lung cancer community in 2021? [everyone must have something to say about this...] #LCSM | |
Eden Lake @EdenLake @Jolanta0713 @lcsmchat @KimballKristen @JFreemanDaily @AmericanCancer @LeciaSequist I hope he will... of course like all of us, pandemic affecting $ and paying co-pays on ER etc likely dissuaded him from taking that route. Despite my nagging. Im still pushing though. #lcsm | |
Laura Greco @lgreco_ny @dennycee @1111linno That's not great to hear. I'm sorry. #lcsm | |
Wear a mask & donate to Lungevity @cacowenclan @jillfeldman4 But I bet you can still make em smile and laugh! That’s my new goal on visits #lcsm | |
Eden Lake @EdenLake Agreed. Finally forcing med system to give us more options | |
Janet Freeman-Daily @JFreemanDaily @dennycee @lgreco_ny @1111linno Sorry to hear -- that sucks. #LCSM | |
#LCSM Chat @lcsmchat I hope and pray that the friends I’ve made in the past 9 years stay alive with a decent QOL. #LCSM | |
Denise Cutlip @dennycee T5: an Inexpensive, easy to administer early dx test given to all (I’m allowed to dream) #lcsm | |
#LCSM Chat @lcsmchat RT @dennycee: T5: T5: an Inexpensive, easy to administer early dx test given to all (I’m allowed to dream) #lcsm | |
Laura Greco @lgreco_ny #lcsm T5: A cure. A girl can dream big. :) | |
#LCSM Chat @lcsmchat RT @lgreco_ny: #lcsm T5: #lcsm T5: A cure. A girl can dream big. :) | |
Janet Freeman-Daily @JFreemanDaily T5: For 2021, I would LOVE to see data that immunotherapy has put some stage IV #lungcancer patients into long term NED (effectively, a cure). #LCSM | |
Linnea Olson @1111linno #lcsm #5 My hope is that none of us shall be complacent. It is good to celebrate the victories but we most also bemoan the losses. Loudly. Until we are heard. Too many are still dying. TOO MANY. | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: For 2021, I would LOVE to see data that immunotherapy has put some stage IV #lungcancer patients into long term NED (effectively, a cure). #LCSM | |
#LCSM Chat @lcsmchat RT @1111linno: #lcsm #5 My hope is that none of us shall be complacent. It is good to celebrate the victories but we most also bemoan the losses. Loudly. Until we are heard. Too many are still dying. TOO MANY. | |
Denise Cutlip @dennycee @JFreemanDaily @dennycee @lgreco_ny @1111linno so far it peripheral Not too bad #lcsm | |
Yolanda Dolinski-Krimin (Yola) 💙💗☕️🐾🏝✝️🇵🇱 @Jolanta0713 @JFreemanDaily @lcsmchat I was dx in March, right when COVID exploded. Spent 8 days in hospital. I didn’t think bout COVID..I knew something was wrong with me & I was going regardless. The Nurse Practitioner I went to see 2 wks prior to dx missed all my signs! #LCSM | |
Laura Greco @lgreco_ny @justbreathe37 @1111linno A great way of describing it. I hope I can take a few breaths this coming year. I've been treading water too much. #lcsm | |
Crystal @CCuadra8 T5: To see more research resulting in more treatments. Hope that Covid shut downs will not impede progress due to closed studies, lower number of participants, or lack of money. #lcsm | |
Wear a mask & donate to Lungevity @cacowenclan T5 a gene alteration via crisper would be great! But continued progress all across the board would be wonderful. Oh and what I have said a bunch of times lately, our own platform to meet, talk, brainstorm, comfort. #LCSM | |
Janet Freeman-Daily @JFreemanDaily T5: I wish/hope/pray that #COVID19 vaccines are highly effective, widely available, easily accessible, and tolerable for everyone. #LCSM | |
Eden Lake @EdenLake @JFreemanDaily T5: hoping for more options, more understanding medical environments, fewer barriers to diagnostics/treatment, easier access to insurance, insurers that actually pay for tests they pre-approved, more treatments, more research dollars & more of us still here this time 2021 #lcsm | |
#LCSM Chat @lcsmchat #lcsm | |
#LCSM Chat @lcsmchat RT @lgreco_ny: @justbreathe37 @1111linno A great way of describing it. I hope I can take a few breaths this coming year. I've been treading water too much. #lcsm | |
#LCSM Chat @lcsmchat RT @CCuadra8: T5: T5: To see more research resulting in more treatments. Hope that Covid shut downs will not impede progress due to closed studies, lower number of participants, or lack of money. #lcsm | |
JustCurious @JustCur18120099 RT @LungProject: Dr. Heidi Hamann, University of Arizona, highlights the need to support #lungcancer patients as a community, especially given the stigma that often comes with a diagnosis. Ending the stigma is a critical step to help ensure everyone receives the care they deserve #lcsm #LCAM | |
Laura Greco @lgreco_ny RT @1111linno: #lcsm #5 My hope is that none of us shall be complacent. It is good to celebrate the victories but we most also bemoan the losses. Loudly. Until we are heard. Too many are still dying. TOO MANY. | |
Kristin Ito @KAdvocate_LCAM T5: that the COVID vaccine won't interrupt current cancer treatments that are working. And that we'll all see each other soon. I'm with @jillfeldman4 and am a hugger... I miss my friends! #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: I wish/hope/pray that #COVID19 vaccines are highly effective, widely available, easily accessible, and tolerable for everyone. #LCSM | |
#LCSM Chat @lcsmchat RT @EdenLake: @JFreemanDaily T5: @JFreemanDaily T5: hoping for more options, more understanding medical environments, fewer barriers to diagnostics/treatment, easier access to insurance, insurers that actually pay for tests they pre-approved, more treatments, more research dollars & more of us still here this time 2021 #lcsm | |
#LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T5: T5: that the COVID vaccine won't interrupt current cancer treatments that are working. And that we'll all see each other soon. I'm with @jillfeldman4 and am a hugger... I miss my friends! #LCSM | |
Eden Lake @EdenLake @lcsmchat Cosigned. #lcsm | |
Janet Freeman-Daily @JFreemanDaily We’re in our final minutes - closing thoughts? #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: We’re in our final minutes - closing thoughts? #LCSM | |
Denise Cutlip @dennycee Let me add that I would like to see all of us here this time next year #lcsm | |
Linnea Olson @1111linno #lcsm Love you all. Stay hopeful. But also angry, because anger is an incredible motivator. COVID has captured imagination because it can happen to anyone. SO CAN LUNG CANCER. #loveyourlungs | |
Eden Lake @EdenLake @JFreemanDaily Omg thats a dream I have all the time... from your lips to researchers ears, and the dates output #lcsm | |
#LCSM Chat @lcsmchat Thank you @JFreemanDaily for moderating tonight, and for being the backbone of @lcsmchat #LCSM | |
Jill Feldman @jillfeldman4 T5 I hope for continued collaborations, more advancements & options, a safe & effective vaccine, more health equity & less stress for all #LCSM | |
#LCSM Chat @lcsmchat RT @dennycee: Let me add that I would like to see all of us here this time next year #lcsm | |
#LCSM Chat @lcsmchat RT @1111linno: #lcsm Love you all. Stay hopeful. But also angry, because anger is an incredible motivator. COVID has captured imagination because it can happen to anyone. SO CAN LUNG CANCER. #loveyourlungs | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T5 I hope for continued collaborations, more advancements & options, a safe & effective vaccine, more health equity & less stress for all #LCSM | |
Janet Freeman-Daily @JFreemanDaily 2020 was one heckuva year. I hope in 2021 we can all find some joy and beauty as we work towards a return to a semblance of "normal" and cures for all #lungcancers. #LCSM | |
KRASKickers @KRASKickers T5 my hope no one feels alone, more lives can be saved. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: 2020 was one heckuva year. I hope in 2021 we can all find some joy and beauty as we work towards a return to a semblance of "normal" and cures for all #lungcancers. #LCSM | |
#LCSM Chat @lcsmchat RT @kRasKickers: T5 my hope no one feels alone, more lives can be saved. #LCSM | |
KC Dill @kasedill Good night and great chat. Take care mentally and physically #lcsm | |
Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @jillfeldman4 THIS. With every human. #lcsm (Miss you all. Was super fortunate to spend some time with @JFreemanDaily in February right before the world shut down but no @AACR, no @ASCO and now no @SABCSSanAntonio... tough. I miss the hugs.) | |
Lung Cancer Sux @LungCancerSux RT @JFreemanDaily: 2020 was one heckuva year. I hope in 2021 we can all find some joy and beauty as we work towards a return to a semblance of "normal" and cures for all #lungcancers. #LCSM | |
Wear a mask & donate to Lungevity @cacowenclan This was a quick hour! 🙏 I appreciate each and everyone of you. Keep your chins up. Peace #LCSM | |
#LCSM Chat @lcsmchat RT @coffeemommy: @jillfeldman4 THIS. With every human. #lcsm (Miss you all. Was super fortunate to spend some time with @JFreemanDaily in February right before the world shut down but no @AACR, no @ASCO and now no @SABCSSanAntonio... tough. I miss the hugs.) | |
Austin Peppers @Jalapeno448 and finally, 4) that we reach more people than ever through our advocacy work. #LCSM | |
Eden Lake @EdenLake @KAdvocate_LCAM @jillfeldman4 This! Biggest fear is that vaccine will not be appropriate due to my past or impeding immunotherapy #lcsm | |
Jill Feldman @jillfeldman4 T4 I hope for a Healthy and Happy Holiday Season & New Year for our entire community! And I hope all physicians, researchers and scientists know how much you're appreciated! Advocates too :) Love and virtual (((HUGS))) to all #LCSM | |
Kristin Ito @KAdvocate_LCAM Thank you @JFreemanDaily for leading us through tonight's chat. I appreciate you. Virtual hugs to all! #LCSM | |
#LCSM Chat @lcsmchat RT @Jalapeno448: and finally, 4) that we reach more people than ever through our advocacy work. #LCSM | |
#LCSM Chat @lcsmchat RT @EdenLake: @KAdvocate_LCAM @jillfeldman4 This! Biggest fear is that vaccine will not be appropriate due to my past or impeding immunotherapy #lcsm | |
#LCSM Chat @lcsmchat RT @jillfeldman4: T4 I hope for a Healthy and Happy Holiday Season & New Year for our entire community! And I hope all physicians, researchers and scientists know how much you're appreciated! Advocates too :) Love and virtual (((HUGS))) to all #LCSM | |
Eden Lake @EdenLake RT @1111linno: #lcsm Love you all. Stay hopeful. But also angry, because anger is an incredible motivator. COVID has captured imagination because it can happen to anyone. SO CAN LUNG CANCER. #loveyourlungs | |
Deb Smith 🌻🟧 @debsmithbeach @JFreemanDaily Thank you for those wonderful sentiments and for all you do! #LCSM | |
Janet Freeman-Daily @JFreemanDaily Thanks to everyone who took time out of their day to participate in #LCSM Chat tonight. Transcript will be up shortly. | |
kristen kimball @KimballKristen T5 More progress on screening. More treatments, more awareness. Also I want to get on the T and visit my MGH friends when you’re in for treatment. I miss you! And I miss touching base with Dave’s care team there, too. #LCSM | |
Eden Lake @EdenLake @1111linno Agreed. Anger is as good a motivator as any... and we have been failed for so long by the stigma enhancing messaging we all wrestle with, that I know we have it in droves. #LCSM | |
Doc Ricky @drricky RT @JFreemanDaily: We've all been newbies at some point. Remember to include #LCSM in all your tweets so we'll see them in the chat! | |
kristen kimball @KimballKristen RT @JFreemanDaily: T5: T5: I wish/hope/pray that #COVID19 vaccines are highly effective, widely available, easily accessible, and tolerable for everyone. #LCSM | |
Eden Lake @EdenLake @JFreemanDaily Thank you for your efforts tonight as always Janet #LCSM | |
Austin Peppers @Jalapeno448 T5: I also hope we all get a chance to catch up, in person, at the LUNGevity International Lung Cancer Survivorship Conference in DC, as well as the regional Breathe Deep events. Julianna and I are really missing our friends this year! #LCSM | |
Inspire @InspireIsHealth RT @1111linno: #lcsm Love you all. Stay hopeful. But also angry, because anger is an incredible motivator. COVID has captured imagination because it can happen to anyone. SO CAN LUNG CANCER. #loveyourlungs | |
kristen kimball @KimballKristen @JFreemanDaily Thank you @JFreemanDaily for moderating and @LungCancerFaces for being the voice of #lcsm chat. These monthly forums are wonderful! | |
kristen kimball @KimballKristen RT @1111linno: #lcsm Love you all. Stay hopeful. But also angry, because anger is an incredible motivator. COVID has captured imagination because it can happen to anyone. SO CAN LUNG CANCER. #loveyourlungs | |
Cashprize @Cashprize RT @1111linno: #lcsm Howdy. Joining the party late! xoxo Linnea stage IV 'this is not my first rodeo'. | |
Wear a mask & donate to Lungevity @cacowenclan RT @jillfeldman4: Read the @EGFRResisters December Newsetter! #LCSM | |
Janet Freeman-Daily @JFreemanDaily Transcript for the 03-Dec-2020 #LCSM Chat “2020--Wild Year for #LungCancer” is available at https://t.co/jVBTcsEK8w |
#LCSM content from Twitter.