#LCSM Transcript

Healthcare social media transcript of the #LCSM hashtag.
().
See #LCSM Influencers/Analytics.

Sign up for FREE Symplur Account and Get
  • Create Transcripts with Custom Dates
  • Get Custom Influencer Lists
  • 3x Hashtag Search Results
Sign Up Now
ProfileTweet
Patty Watkins @Pattybeatslungc
RT @MedscapeOnc: Clinical trials may set new standards, but they often fail to address how difficult it is to implement these approaches in…
Janet Freeman-Daily @JFreemanDaily
Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https://t.co/5dTHsmCN7s
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/…
OncLive.com @OncLive
Capmatinib Continues to Show Significant Antitumor Activity in METex14+ NSCLC #lcsm. https://t.co/uYicS0Uszm
Faces of Lung Cancer @LungCancerFaces
RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/…
Danielle Pardue @Actorielle
RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/…
Upstage Lung Cancer @UpstageLungCanc
RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/…
Danielle Pardue @Actorielle
#lcsm Hi, friends! SO happy to be here. Feels like a family reunion when I log into this chat, as always. Danielle here: caregiver and advocate. Tuning in from NC.
Janet Freeman-Daily @JFreemanDaily
We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM
Triage Cancer @TriageCancer
#LCSM Good evening! Honored to be here! We are a national nonprofit providing free education and resources on the legal and practical issues faced by people after a cancer diagnosis. Thrilled to learn from this chat this evening! #beyonddiagnosis
Deb Smith 🇺🇸🗽💙🎉🌅🍾 @debsmithbeach
Deb, from NH, checking in. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM
#LCSM Chat @lcsmchat
@Actorielle Welcome! How’s mom? #lcsm
#LCSM Chat @lcsmchat
@TriageCancer Welcome! #lcsm
Charu Aggarwal, MD, MPH @CharuAggarwalMD
@JFreemanDaily Hi everyone, Thoracic Medical Oncologist at @penncancer joining in from Philly. Looking forward to an engaging discussion #LCSM
Patty Watkins @Pattybeatslungc
RT @JFreemanDaily: We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM
#LCSM Chat @lcsmchat
@debsmithbeach Hi Deb! #lcsm
Janet Freeman-Daily @JFreemanDaily
I’m your moderator Janet Freeman-Daily (writer, science geek, #lungcancer patient/research advocate). #LCSM
I Wear Masks @wildwestannie
Betsy here, checking in #Lcsm
KRASKickers @kRasKickers
#LCSM Hi All Terri here my-first time
Upstage Lung Cancer @UpstageLungCanc
#lcsm So excited to be here, friends! We are a performing arts-based lung cancer research fundraising organization based in Boston. Always happy when we can participate in these chats. Thank you for hosting!
Jill @jillfeldman4
Hi Everyone, Jill here. Looking forward to this discussion! #LCSM
#LCSM Chat @lcsmchat
@CharuAggarwalMD @JFreemanDaily @PennCancer Thanks for joining! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily (writer, science geek, #lungcancer patient/research advocate). #LCSM
Linnea Olson @1111linno
Good evening :) #lcsm
Dave Bjork @bjork5
@CharuAggarwalMD @JFreemanDaily @PennCancer Yay @Penn 🙌😎 #lcsm
#LCSM Chat @lcsmchat
@wildwestannie Hey Betsy! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Tim here. #lcsm
Danielle Pardue @Actorielle
@JFreemanDaily And superhero, and genius, and so much more! #lcsm
Arpan Patel @ArpanAshokPatel
Hello Everyone! Chiming in from Wilmot Cancer Center, Rochester NY. #lcsm
#LCSM Chat @lcsmchat
@kRasKickers Hi Terri! #lcsm
#LCSM Chat @lcsmchat
@UpstageLungCanc Welcome! #lcsm
Jan Marie Eberth @jmeberth
@JFreemanDaily @lcsmchat Hi Janet. Looking forward to tonight’s chat! #LCSM
Dave Bjork @bjork5
@JFreemanDaily Hey Janet! Dave here, research evangelist from Boston 🙌 #lcsm
#LCSM Chat @lcsmchat
@1111linno Woo Hoo! Linnea! #lcsm
Janet Freeman-Daily @JFreemanDaily
If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb
#LCSM Chat @lcsmchat
@bjork5 @CharuAggarwalMD @JFreemanDaily @PennCancer @Penn Hey Dave! #lcsm
Patty Watkins @Pattybeatslungc
RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily (writer, science geek, #lungcancer patient/research advocate). #LCSM
#LCSM Chat @lcsmchat
@TimAllenMDJD Hi Tim! #lcsm
Patty Watkins @Pattybeatslungc
RT @bjork5: @JFreemanDaily Hey Janet! Dave here, research evangelist from Boston 🙌 #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/…
#LCSM Chat @lcsmchat
@ArpanAshokPatel Welcome! #lcsm
#LCSM Chat @lcsmchat
@jmeberth @JFreemanDaily Thanks for joining! #lcsm
Elliot Servais, MD, FACS @ElliotServaisMD
Hi all - thoracic surgeon at Lahey in MA. newbie on Twitter...first ever TweetChat for me. Looking forward to discussion #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/…
Patty Watkins @Pattybeatslungc
RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/…
Dave Bjork @bjork5
@1111linno Hi Linnea! 😊 #lcsm
#LCSM Chat @lcsmchat
@ElliotServaisMD Welcome! We were all newbies once. #lcsm
Janet Freeman-Daily @JFreemanDaily
Please remember to use #lcsm in all your tweets so others participating in the chat can see them. If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Howdy! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them. If you prefer just to…
Janet Freeman-Daily @JFreemanDaily
Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM
KRASKickers @kRasKickers
@ElliotServaisMD Hi - my first too #LCSM
Jan Marie Eberth @jmeberth
#LCSM Hi everyone... Jan Eberth, epidemiologist here from @UofSC @RMHRC_UofSC. Population health scientist with passion for cancer equity research and advocacy!
Laronica Conway @louisianagirl91
RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/…
Faces of Lung Cancer @LungCancerFaces
Deana here! I’ll be tweeting from the @lcsmchat account tonight. #lcsm
Upstage Lung Cancer @UpstageLungCanc
@ElliotServaisMD Welcome! We love our friendship with Lahey! Thank you for your work! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @LungCancerFaces: Deana here! I’ll be tweeting from the @lcsmchat account tonight. #lcsm
Upstage Lung Cancer @UpstageLungCanc
RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/…
Dave Bjork @bjork5
@ElliotServaisMD Hey Elliot, welcome...I’m in Georgetown, MA #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not displa…
Patty Watkins @Pattybeatslungc
RT @findlungcancer: Risk Prediction Model Versus United States Preventive Services Task Force Lung Cancer Screening Eligibility Criteria: R…
Laronica Conway @louisianagirl91
Heeeeyy #LCSM family! Hanging out for a bit from Birmingham, Ala. #lcsm
Janet Freeman-Daily @JFreemanDaily
I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM
#LCSM Chat @lcsmchat
@louisianagirl91 Hey Roni! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #L
Dave Bjork @bjork5
@LungCancerFaces @lcsmchat Hey Deana! 😊 #lcsm
Gabriel Quintela @gabrielmqr
RT @myESMO: No Overall Survival Benefit in EGFR T790M Advanced #NSCLC Treated with Osimertinib vs #Chemotherapy: Final overall survival dat…
Patty Watkins @Pattybeatslungc
@JFreemanDaily @lcsmchat #LCSM
Laronica Conway @louisianagirl91
@Actorielle 💕💕💕 Omg we TOTALLY need to catch up!!! #LCSM
KRASKickers @kRasKickers
@louisianagirl91 Hi Laronica #LCSM
Austin Peppers @Jalapeno448
Austin from Worcester, MA here for my first chat! #LCSM
#LCSM Chat @lcsmchat
Please say hi if you’re out there. I see a few of you quiet tweeps. #LCSM
Janet Freeman-Daily @JFreemanDaily
T1: How do you define cancer advocacy? Is it advocating for yourself, other patients, one type of cancer, all cancers? Do all of these require the same skills, time commitment, education? #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: T1: How do you define cancer advocacy? Is it advocating for yourself, other patients, one type of cancer, all cancers? D…
#LCSM Chat @lcsmchat
@Jalapeno448 Welcome! We are thrilled to have 3 first timers tonight. #lcsm
Laronica Conway @louisianagirl91
@kRasKickers #lcsm 💕💕💕💕 https://t.co/RHytqTtpAQ
Danielle Pardue @Actorielle
RT @JFreemanDaily: T1: How do you define cancer advocacy? Is it advocating for yourself, other patients, one type of cancer, all cancers? D…
#LCSM Chat @lcsmchat
@Pattybeatslungc @JFreemanDaily Hey Patty! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T1: How do you define cancer advocacy? Is it advocating for yourself, other patients, one type of cancer, all cancers? D…
kristen kimball @KimballKristen
Kris from Boston, “legacy” caregiver, currently teaching A&P online in the AM, babysitting the grands in the afternoon, and is determined to honor husband Dave (who left us one year ago last Monday) through lung cancer advocacy. Hi! #LCSM (helps to get acronym straight)
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
RT @JFreemanDaily: T1: How do you define cancer advocacy? Is it advocating for yourself, other patients, one type of cancer, all cancers? D…
Jill @jillfeldman4
T1 Advocating for yourself is the first step in advocacy & the most important. It's like air safety - put your mask on before your child's! #LCSM
#LCSM Chat @lcsmchat
@KimballKristen Hey lady! I like that term “legacy caretaker.” #lcsm
#LCSM Chat @lcsmchat
@RedGia @JFreemanDaily Great to “see” you! You may want to take the privacy setting off for the chat. #lcsm
#LCSM Chat @lcsmchat
RT @jillfeldman4: T1 Advocating for yourself is the first step in advocacy & the most important. It's like air safety - put your mask on be…
Laronica Conway @louisianagirl91
@JFreemanDaily @lcsmchat As a family member, I guess we unwittingly become “advocates” during some of those early onc appts, asking the questions our loved ones are unsure about. #lcsm
Dr. David Tom Cooke @DavidCookeMD
A1 #Cancer advocacy is a big tent. All stakeholders. Patients, family, friends care providers, practitioners, researchers, etc... As long as pushing for evidenced based care, access, equity, resources. #LCSM
Upstage Lung Cancer @UpstageLungCanc
#lcsm T1: for us, it's all about doing our best to raise funds for research. We were founded by a performing artist and LC survivor, and she believes in turning to the skillsets we already have in order to fundraise. Harnessing skillsets is a big part of advocacy.
Dana Quinn @Dana1696
@lcsmchat @RedGia @JFreemanDaily Hi 👋 #lcsm
Jan Marie Eberth @jmeberth
T1: To me, cancer advocacy is using a platform to raise issues of inequity in cancer care, amplify survivors voices and needs, and cause a ruckus when one needs to be made! #LCSM I often find my message is similar no matter the cancer I’m being interviewed about...
Patty Watkins @Pattybeatslungc
RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @louisianagirl91: @JFreemanDaily @lcsmchat As a family member, I guess we unwittingly become “advocates” during some of those early onc…
#LCSM Chat @lcsmchat
RT @louisianagirl91: @JFreemanDaily @lcsmchat As a family member, I guess we unwittingly become “advocates” during some of those early onc…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @DavidCookeMD: A1 #Cancer advocacy is a big tent. All stakeholders. Patients, family, friends care providers, practitioners, researche…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @UpstageLungCanc: #lcsm T1: for us, it's all about doing our best to raise funds for research. We were founded by a performing artist an…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A1 #Cancer advocacy is a big tent. All stakeholders. Patients, family, friends care providers, practitioners, researche…
#LCSM Chat @lcsmchat
RT @UpstageLungCanc: #lcsm T1: for us, it's all about doing our best to raise funds for research. We were founded by a performing artist an…
Danielle Pardue @Actorielle
RT @louisianagirl91: @JFreemanDaily @lcsmchat As a family member, I guess we unwittingly become “advocates” during some of those early onc…
Dave Bjork @bjork5
@JFreemanDaily T1 For me it’s advocating for #research funding for all cancers, but with a priority for lung cancer. Advocating for me is sharing stories of dedicated scientists doing good work #lcsm
Jill @jillfeldman4
T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education the role can go anywhere from fundraising to policy to research #LCSM
#LCSM Chat @lcsmchat
@Dana1696 @RedGia @JFreemanDaily Hey Dana! #lcsm
Patty Watkins @Pattybeatslungc
RT @louisianagirl91: @JFreemanDaily @lcsmchat As a family member, I guess we unwittingly become “advocates” during some of those early onc…
#LCSM Chat @lcsmchat
RT @jmeberth: T1: To me, cancer advocacy is using a platform to raise issues of inequity in cancer care, amplify survivors voices and needs…
#LCSM Chat @lcsmchat
RT @bjork5: @JFreemanDaily T1 For me it’s advocating for #research funding for all cancers, but with a priority for lung cancer. Advocating…
#LCSM Chat @lcsmchat
RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @jmeberth: T1: To me, cancer advocacy is using a platform to raise issues of inequity in cancer care, amplify survivors voices and needs…
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
@JFreemanDaily @lcsmchat Advocating for awareness fir lung cancer to get earlier dx and treatment and research for tx #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @bjork5: @JFreemanDaily T1 For me it’s advocating for #research funding for all cancers, but with a priority for lung cancer. Advocating…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @Kamacintosh: @JFreemanDaily @lcsmchat Advocating for awareness fir lung cancer to get earlier dx and treatment and research for tx #LCSM
Laronica Conway @louisianagirl91
RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education…
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education…
Patty Watkins @Pattybeatslungc
@JFreemanDaily @lcsmchat T1 incredible passion and time commitments in advocacy They each require essential the same skills #LCSM
Dana Quinn @Dana1696
@JFreemanDaily My cancer advocacy began after losing my dad to pancreatic cancer in 2011 and learning how underfunded it was. Fast forward to 2015 and I then became a lung cancer advocate when my mom died 4 weeks from diagnosis. #lcsm
#LCSM Chat @lcsmchat
@aepriceny Feel free to join in. Make sure to include the hashtag #LCSM to your tweets in order to participate. #lcsm
Sabin Motwani @sabinbmotwanimd
T1: Advocacy should be personal (but not necessarily only for yourself), because one should be passionate about what they want to advocate for. I'm a big believer of advocating for what the patient wants, not necessarily the MDs. #lcsm
Laronica Conway @louisianagirl91
@jillfeldman4 So true about evolving over time. There isn’t an actual blueprint is there? #lcsm
Triage Cancer @TriageCancer
#LCSM T1 We like to define advocacy as "the application of pressure and influence on the people and/or institutions that have the power to give you what you want." Different for every stakeholder. Could be legislative, scientific, personal, for others...
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @Pattybeatslungc: @JFreemanDaily @lcsmchat T1 incredible passion and time commitments in advocacy They each require essential the same s…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @Dana1696: @JFreemanDaily My cancer advocacy began after losing my dad to pancreatic cancer in 2011 and learning how underfunded it was.…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @sabinbmotwanimd: T1: Advocacy should be personal (but not necessarily only for yourself), because one should be passionate about what t…
Danielle Pardue @Actorielle
RT @UpstageLungCanc: #lcsm T1: for us, it's all about doing our best to raise funds for research. We were founded by a performing artist an…
Jan Marie Eberth @jmeberth
That message is usually 1) we need more $ for prevention, 2) everyone should have insurance, 3) high quality care should not reserved for select few, 4) we need more cancer providers to work in rural America... #LCSM
Laronica Conway @louisianagirl91
RT @TriageCancer: #LCSM T1 We like to define advocacy as "the application of pressure and influence on the people and/or institutions that…
Laronica Conway @louisianagirl91
RT @sabinbmotwanimd: T1: Advocacy should be personal (but not necessarily only for yourself), because one should be passionate about what t…
#LCSM Chat @lcsmchat
@Kamacintosh Hi Kim! Autocorrect changed your hashtag to clam. Happens to us, too. #lcsm
Laronica Conway @louisianagirl91
RT @Dana1696: @JFreemanDaily My cancer advocacy began after losing my dad to pancreatic cancer in 2011 and learning how underfunded it was.…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @TriageCancer: #LCSM T1 We like to define advocacy as "the application of pressure and influence on the people and/or institutions that…
Elliot Servais, MD, FACS @ElliotServaisMD
T1: I believe advocacy starts with education. Educating yourself about the disease, but more importantly the patient experience. Then educating others #lcsm
Danielle Pardue @Actorielle
RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @ElliotServaisMD: T1: I believe advocacy starts with education. Educating yourself about the disease, but more importantly the patient e…
#LCSM Chat @lcsmchat
#lcsm
Dave Bjork @bjork5
RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education…
Danielle Pardue @Actorielle
RT @TriageCancer: #LCSM T1 We like to define advocacy as "the application of pressure and influence on the people and/or institutions that…
#LCSM Chat @lcsmchat
#lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @lcsmchat: #lcsm
#LCSM Chat @lcsmchat
RT @Kamacintosh: @JFreemanDaily @lcsmchat Advocating for awareness fir lung cancer to get earlier dx and treatment and research for tx #LCSM
#LCSM Chat @lcsmchat
RT @Pattybeatslungc: @JFreemanDaily @lcsmchat T1 incredible passion and time commitments in advocacy They each require essential the same s…
kristen kimball @KimballKristen
@louisianagirl91 @jillfeldman4 What @jillfeldman4 said - started as advocacy for husband Dave, will continue for my kids (bc we still don’t know why Dave got LC) and for the LC family. Horribly underfunded and misunderstood. Not fair. #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @lcsmchat: #lcsm
#LCSM Chat @lcsmchat
#lcsm
Laronica Conway @louisianagirl91
@Dana1696 @JFreemanDaily Yes! Did you feel like you couldn’t DO enough? It’s like, I felt like I needed to make up for lost time and not knowing all the stats...I was almost overwhelmed! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @KimballKristen: @louisianagirl91 @jillfeldman4 What @jillfeldman4 said - started as advocacy for husband Dave, will continue for my kid…
Janet Freeman-Daily @JFreemanDaily
Topic T2 is coming up … #LCSM
#LCSM Chat @lcsmchat
#lcsm
Danielle Pardue @Actorielle
#LCSM T1 I ask myself this all the time, bc even several years in, folks still don't understand what I do all day. And that's okay! It's literally my job to explain it better 😂 Started with trying to find best tx for mom. Now, it's mostly dissemination of resources and info.
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @lcsmchat: #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @lcsmchat: #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @Actorielle: #LCSM T1 I ask myself this all the time, bc even several years in, folks still don't understand what I do all day. And that…
Julia Maués @itsnot_pink
Hi #LCSM! So many amazing LC advocates I admire and learn from, I’ll check in today. T1: yes, we all start in advocacy by advocating for ourselves, then helping a friend with our subtype, then learning about others and it keeps expanding
Laronica Conway @louisianagirl91
RT @Actorielle: #LCSM T1 I ask myself this all the time, bc even several years in, folks still don't understand what I do all day. And that…
Danielle Pardue @Actorielle
RT @lcsmchat: #lcsm https://t.co/puTw9xAQqM
#LCSM Chat @lcsmchat
@itsnot_pink Hey Julia! Thanks for joining. #lcsm
Janet Freeman-Daily @JFreemanDaily
Pro tip: use #lcsm in all your tweets so others participating in the chat can see them. #LCSM
#LCSM Chat @lcsmchat
RT @Dana1696: @JFreemanDaily My cancer advocacy began after losing my dad to pancreatic cancer in 2011 and learning how underfunded it was.…
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: T1: Advocacy should be personal (but not necessarily only for yourself), because one should be passionate about what t…
#LCSM Chat @lcsmchat
RT @louisianagirl91: @jillfeldman4 So true about evolving over time. There isn’t an actual blueprint is there? #lcsm
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
RT @Pattybeatslungc: @JFreemanDaily @lcsmchat T1 incredible passion and time commitments in advocacy They each require essential the same s…
#LCSM Chat @lcsmchat
RT @TriageCancer: #LCSM T1 We like to define advocacy as "the application of pressure and influence on the people and/or institutions that…
#LCSM Chat @lcsmchat
RT @jmeberth: That message is usually 1) we need more $ for prevention, 2) everyone should have insurance, 3) high quality care should not…
Austin Peppers @Jalapeno448
@JFreemanDaily T1: Advocacy from my perspective is to 1) be the voice for those who no longer have they're own and 2) be the force standing beside those who have their own and assist in bringing effective and positive change to the world #LCSM
#LCSM Chat @lcsmchat
RT @ElliotServaisMD: T1: I believe advocacy starts with education. Educating yourself about the disease, but more importantly the patient e…
#LCSM Chat @lcsmchat
RT @KimballKristen: @louisianagirl91 @jillfeldman4 What @jillfeldman4 said - started as advocacy for husband Dave, will continue for my kid…
#LCSM Chat @lcsmchat
RT @louisianagirl91: @Dana1696 @JFreemanDaily Yes! Did you feel like you couldn’t DO enough? It’s like, I felt like I needed to make up for…
#LCSM Chat @lcsmchat
RT @Actorielle: #LCSM T1 I ask myself this all the time, bc even several years in, folks still don't understand what I do all day. And that…
#LCSM Chat @lcsmchat
RT @itsnot_pink: Hi #LCSM! So many amazing LC advocates I admire and learn from, I’ll check in today. T1: yes, we all start in advocacy b…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @Jalapeno448: @JFreemanDaily T1: Advocacy from my perspective is to 1) be the voice for those who no longer have they're own and 2) be t…
Laronica Conway @louisianagirl91
@1111linno @lcsmchat Exactly how it happened for my mom. She told people to ask her anything they wanted to know. She wasn’t afraid to talk about because she needed to share what she learned as a patient. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Pro tip: use #lcsm in all your tweets so others participating in the chat can see them. #LCSM
Dave Bjork @bjork5
@lcsmchat True Patty, the more we are defined by our mutation it shows the progress we are making in #research! #lcsm
#LCSM Chat @lcsmchat
RT @Jalapeno448: @JFreemanDaily T1: Advocacy from my perspective is to 1) be the voice for those who no longer have they're own and 2) be t…
#LCSM Chat @lcsmchat
RT @louisianagirl91: @1111linno @lcsmchat Exactly how it happened for my mom. She told people to ask her anything they wanted to know. She…
#LCSM Chat @lcsmchat
RT @bjork5: @lcsmchat True Patty, the more we are defined by our mutation it shows the progress we are making in #research! #lcsm
Harpreet Singh, MD @harpreet_md
@kRasKickers Hi Terri! So happy to see you here! #LCSM
Dana Quinn @Dana1696
@JFreemanDaily T1-I find advocating for both lung and pancreatic cancers are similar because they are both underfunded and need the most awareness and education. #lcsm
Laronica Conway @louisianagirl91
RT @Dana1696: @JFreemanDaily T1-I find advocating for both lung and pancreatic cancers are similar because they are both underfunded and ne…
Janet Freeman-Daily @JFreemanDaily
T2: What aspect of cancer advocacy is most meaningful for you: self-advocacy, patient navigation, raising awareness, fundraising, co-designing research, increasing access to care, changing policy, other? #LCSM
KRASKickers @kRasKickers
@harpreet_md Thanks Nice to see you here too! #LCSM
Sabin Motwani @sabinbmotwanimd
T1 Advocacy is also like running a marathon. Slow and steady will yield far more consistent results, than just sprinting. #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: T2: What aspect of cancer advocacy is most meaningful for you: self-advocacy, patient navigation, raising awareness, fun…
Upstage Lung Cancer @UpstageLungCanc
RT @JFreemanDaily: T2: What aspect of cancer advocacy is most meaningful for you: self-advocacy, patient navigation, raising awareness, fun…
Jill @jillfeldman4
T1 For me advocacy is standing up for what's right & speak for all those who died, who are living with the disease & yet to be diagnosed. It's up to us to provoke change. #LCSM
#LCSM Chat @lcsmchat
RT @Dana1696: @JFreemanDaily T1-I find advocating for both lung and pancreatic cancers are similar because they are both underfunded and ne…
Laronica Conway @louisianagirl91
@Dana1696 @JFreemanDaily Right! And both are cancers that you can’t “see” or “feel” so many are completely unaware. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T2: What aspect of cancer advocacy is most meaningful for you: self-advocacy, patient navigation, raising awareness, fun…
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: T1 Advocacy is also like running a marathon. Slow and steady will yield far more consistent results, than just sprint…
#LCSM Chat @lcsmchat
RT @jillfeldman4: T1 For me advocacy is standing up for what's right & speak for all those who died, who are living with the disease & yet…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @jillfeldman4: T1 For me advocacy is standing up for what's right & speak for all those who died, who are living with the disease & yet…
Laronica Conway @louisianagirl91
@1111linno @lcsmchat I honestly believe it was the teacher in her! 💕 #lcsm
KRASKickers @kRasKickers
T2 Feeling heard, being part of the solution #LCSM
Elliot Servais, MD, FACS @ElliotServaisMD
T2: Eliminating stigma. Negative stigmas create obstacles to self-advocacy, screening, and research funding. This comes back to education! #lcsm
#LCSM Chat @lcsmchat
RT @kRasKickers: T2 Feeling heard, being part of the solution #LCSM
Upstage Lung Cancer @UpstageLungCanc
T2 We're all about research fundraising, because we believe that's how to move the needle. We've been able to contribute in a significant way to research projects at major institutions (academic and regional), so we've been blessed to see concrete results from our work. #lcsm
kristen kimball @KimballKristen
T2 At the moment, raising awareness...of the fact anyone can get lung cancer (still such a shock to ppl) and also, for those diagnosed with EGFR (what Dave had and what I know best) encouraging them to get the expert consult, get the best available option for tx #LCSM
#LCSM Chat @lcsmchat
RT @ElliotServaisMD: T2: Eliminating stigma. Negative stigmas create obstacles to self-advocacy, screening, and research funding. This come…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @KimballKristen: T2 At the moment, raising awareness...of the fact anyone can get lung cancer (still such a shock to ppl) and also, for…
Linnea Olson @1111linno
#LCSM T1: I abide by the medical maxim, first do no harm. I could not become an advocate until I'd wrestled with my own fear and negativity. I want to keep it real but also to inspire. No one should take aways another's hope.
Dana Quinn @Dana1696
@JFreemanDaily T2-as a loved one who lost her parents 2 the nation’s deadliest cancers, I am passionate about raising awareness, funds, and holding our fed’l gov’t accountable 4 allocating equitable funding 4 lung & pancreatic cancer. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @1111linno: #LCSM T1: I abide by the medical maxim, first do no harm. I could not become an advocate until I'd wrestled with my own fear…
#LCSM Chat @lcsmchat
RT @UpstageLungCanc: T2 We're all about research fundraising, because we believe that's how to move the needle. We've been able to contribu…
#LCSM Chat @lcsmchat
RT @KimballKristen: T2 At the moment, raising awareness...of the fact anyone can get lung cancer (still such a shock to ppl) and also, for…
#LCSM Chat @lcsmchat
RT @1111linno: #LCSM T1: I abide by the medical maxim, first do no harm. I could not become an advocate until I'd wrestled with my own fear…
#LCSM Chat @lcsmchat
RT @Dana1696: @JFreemanDaily T2-as a loved one who lost her parents 2 the nation’s deadliest cancers, I am passionate about raising awarene…
Dave Bjork @bjork5
@JFreemanDaily T2 Wow Janet so many great thoughtful advocacy roles here! For me it’s the advocating for a change to how researchers get funded...they spend too much time writing grants and fundraising. All the roles you mention are important! #LCSM
ann price @aepriceny
@lcsmchat When pulmonologist #1 told me I had GGO tumor, and needed a biopsy and #2 it’s in a difficult place and we could “let it grow” for 3 months, there was no more “we”. There was me fighting for a biopsy. In 3 months Covid hit. Advocacy is the ONLY way. #lcsm
#LCSM Chat @lcsmchat
#lcsm
Dee Sparacio @womenofteal
Hi all Sorry I’m late. #LCSM
#LCSM Chat @lcsmchat
RT @bjork5: @JFreemanDaily T2 Wow Janet so many great thoughtful advocacy roles here! For me it’s the advocating for a change to how resear…
#LCSM Chat @lcsmchat
RT @aepriceny: @lcsmchat When pulmonologist #1 told me I had GGO tumor, and needed a biopsy and #2 it’s in a difficult place and we could “…
Danielle Pardue @Actorielle
T2 To be totally honest, I feel most accomplished when I am able to introduce someone to new resources or to the advocacy sphere. It's like opening a whole new set of doors for someone in a very vulnerable time. Options for info, options for connection, options for tx. #lcsm
Laronica Conway @louisianagirl91
@JFreemanDaily For me it was all about removing the stigma of lung cancer. Many have been ignored because of the stigma and I always felt it was so unfair. So naturally, increasing funding was next because we had a lot of catching up to do. #lcsm
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
@lcsmchat yes as we start the journey we share our story which evolves into awareness and then Lung facts then evolve to research that will change the future Lung Cancer , for a passion to educate the public , and I want to create Hope for others #LCSM
Jan Marie Eberth @jmeberth
T2: The most meaningful part of advocacy to me is changing (or hoping to change) policies that unfairly advantage some patients over others, even if inadvertently. Yet, these can be the hardest to change and can be very frustrating to see policy makers ignore... #LCSM
#LCSM Chat @lcsmchat
@womenofteal Thanks for joining! #lcsm
#LCSM Chat @lcsmchat
RT @Actorielle: T2 To be totally honest, I feel most accomplished when I am able to introduce someone to new resources or to the advocacy s…
Lurie Cancer Center @LurieCancer
RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/…
#LCSM Chat @lcsmchat
RT @louisianagirl91: @JFreemanDaily For me it was all about removing the stigma of lung cancer. Many have been ignored because of the stigm…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @jmeberth: T2: The most meaningful part of advocacy to me is changing (or hoping to change) policies that unfairly advantage some patien…
Laronica Conway @louisianagirl91
RT @jmeberth: T2: The most meaningful part of advocacy to me is changing (or hoping to change) policies that unfairly advantage some patien…
#LCSM Chat @lcsmchat
RT @Kamacintosh: @lcsmchat yes as we start the journey we share our story which evolves into awareness and then Lung facts then evolve to r…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @louisianagirl91: @JFreemanDaily For me it was all about removing the stigma of lung cancer. Many have been ignored because of the stigm…
#LCSM Chat @lcsmchat
RT @jmeberth: T2: The most meaningful part of advocacy to me is changing (or hoping to change) policies that unfairly advantage some patien…
Janet Freeman-Daily @JFreemanDaily
We’ll shift to Topic T3 next … #LCSM
Kevin @Kmace20
RT @rocketgirlmd: 14 years today. Ditto.❤️
Jeff Julian @CoachJeffJulian
@JFreemanDaily T2: hi all, long time, my time is limited so I have found sharing my story, aimed at providing hope and inspiration where I can is what has meant most to me. #LCSM
#LCSM Chat @lcsmchat
RT @CoachJeffJulian: @JFreemanDaily T2: hi all, long time, my time is limited so I have found sharing my story, aimed at providing hope and…
Dave Bjork @bjork5
@jillfeldman4 T2 Your voice does make a difference Jill 🙌 #LCSM
Jill @jillfeldman4
T1 Connecting with others will always be the most meaningful. Helping others through the dark scary tunnel of hell & alleviate some anxiety is the best feeling & selfishly helps me because my family didn't have any support 20+ years ago #LCSM
#LCSM Chat @lcsmchat
Please join us by tweeting #LCSM. I see a number of you quietly watching. #lcsm
Laronica Conway @louisianagirl91
@jmeberth Totally agree with this one. Growing up in a rural area, I saw the major discrepancies many faced all because of a zip code. 🤦🏾‍♀️🤷🏾‍♀️ Access to care should be equal. #lcsm
#LCSM Chat @lcsmchat
RT @jillfeldman4: T1 Connecting with others will always be the most meaningful. Helping others through the dark scary tunnel of hell & alle…
#LCSM Chat @lcsmchat
RT @louisianagirl91: @jmeberth Totally agree with this one. Growing up in a rural area, I saw the major discrepancies many faced all becaus…
Jill @jillfeldman4
T2 I do have to say that being a research advocate & seeing how we/patients can change the trajectory of research is pretty damn exciting & meaningful too! #LCSM
Austin Peppers @Jalapeno448
T1: As a current lung cancer researcher/advocate and hopeful physican-scientist, I always attempt to walk the crossroads of patient advocacy, lung cancer patient perspectives, and science in my everyday experiments. Although not on the 'front-lines', that is advocacy too! #LCSM
Triage Cancer @TriageCancer
T2 For us: providing people with practical, important info much sooner after their dx than they usually receive it, so that they can have more control over their lives and have more freedom of choice - crucial after dx when so much freedom and choice feels stolen away. #lcsm
#LCSM Chat @lcsmchat
RT @jillfeldman4: T2 I do have to say that being a research advocate & seeing how we/patients can change the trajectory of research is pret…
Dee Sparacio @womenofteal
@JFreemanDaily T1 All of the above . Though it started as self-advocacy , progressed to advocating for #ovca and then added advocating for all cancers by being a research advocate and working with my cancer center . #lcsm
#LCSM Chat @lcsmchat
RT @Jalapeno448: T1: As a current lung cancer researcher/advocate and hopeful physican-scientist, I always attempt to walk the crossroads o…
Laronica Conway @louisianagirl91
RT @ElliotServaisMD: T1: I believe advocacy starts with education. Educating yourself about the disease, but more importantly the patient e…
#LCSM Chat @lcsmchat
RT @TriageCancer: T2 For us: providing people with practical, important info much sooner after their dx than they usually receive it, so th…
#LCSM Chat @lcsmchat
RT @womenofteal: @JFreemanDaily T1 All of the above . Though it started as self-advocacy , progressed to advocating for #ovca and then adde…
Laronica Conway @louisianagirl91
RT @womenofteal: @JFreemanDaily T1 All of the above . Though it started as self-advocacy , progressed to advocating for #ovca and then adde…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @Jalapeno448: T1: As a current lung cancer researcher/advocate and hopeful physican-scientist, I always attempt to walk the crossroads o…
Janet Freeman-Daily @JFreemanDaily
T3: What discourages you from participating in cancer advocacy? #LCSM
Linnea Olson @1111linno
#LCSM T2: I think we all discover both our strengths and our weaknesses as well as where our heart is. For me it is medical research and the issues involving clinical trial participation. Access, disparity, the rights of participants.
Dr. David Tom Cooke @DavidCookeMD
A2 Raising awareness on a #cancer problem. I get a lot of "I had no idea!" #LCSM
Danielle Pardue @Actorielle
RT @jillfeldman4: T2 I do have to say that being a research advocate & seeing how we/patients can change the trajectory of research is pret…
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T3: What discourages you from participating in cancer advocacy? #LCSM
#LCSM Chat @lcsmchat
RT @1111linno: #LCSM T2: I think we all discover both our strengths and our weaknesses as well as where our heart is. For me it is medical…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A2 Raising awareness on a #cancer problem. I get a lot of "I had no idea!" #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @1111linno: #LCSM T2: I think we all discover both our strengths and our weaknesses as well as where our heart is. For me it is medical…
Jan Marie Eberth @jmeberth
RT @louisianagirl91: @jmeberth Totally agree with this one. Growing up in a rural area, I saw the major discrepancies many faced all becaus…
Laronica Conway @louisianagirl91
@womenofteal @JFreemanDaily OooOh we totally need to connect!! 🤗 That’s now I got started and now it’s a career!! 💕💕 #lcsm
Danielle Pardue @Actorielle
This, this, always and forever this! #lcsm
Danielle Pardue @Actorielle
RT @jillfeldman4: T1 Connecting with others will always be the most meaningful. Helping others through the dark scary tunnel of hell & alle…
Jill @jillfeldman4
@Jalapeno448 You were an incredible advocate when your mom was alive and you are an incredible advocate now - your mom would be so proud of you @Jalapeno448! #LCSM
Laronica Conway @louisianagirl91
RT @Jalapeno448: T1: As a current lung cancer researcher/advocate and hopeful physican-scientist, I always attempt to walk the crossroads o…
Nina Davis @ Australian Teacher & Manufacturer @ninadavis
@lcsmchat @womenofteal I advocate... I am not a carer. Using the word carer is not empowering, it’s disempowering. #lcsm
Dr. David Tom Cooke @DavidCookeMD
A3 Nothing really. Not even the online trolls. #LCSM
Laronica Conway @louisianagirl91
RT @jillfeldman4: T2 I do have to say that being a research advocate & seeing how we/patients can change the trajectory of research is pret…
#LCSM Chat @lcsmchat
RT @louisianagirl91: @womenofteal @JFreemanDaily OooOh we totally need to connect!! 🤗 That’s now I got started and now it’s a career!! 💕💕 #…
Gilda da Cunha Santos, MD, PhD, FIAC, FRCPath @gildasantoscyto
RT @1111linno: #LCSM T2: I think we all discover both our strengths and our weaknesses as well as where our heart is. For me it is medical…
Dave Bjork @bjork5
This! 👇 #lcsm #research #patientvoice
#LCSM Chat @lcsmchat
RT @jillfeldman4: @Jalapeno448 You were an incredible advocate when your mom was alive and you are an incredible advocate now - your mom wo…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @DavidCookeMD: A3 Nothing really. Not even the online trolls. #LCSM
#LCSM Chat @lcsmchat
RT @ninadavis: @lcsmchat @womenofteal I advocate... I am not a carer. Using the word carer is not empowering, it’s disempowering. #lcsm
Austin Peppers @Jalapeno448
@JFreemanDaily T2: Shoot, they are all so meaningful! Raising awareness, changing policy, and increasing access to care are up there for me. #LCSM
Danielle Pardue @Actorielle
RT @UpstageLungCanc: T2 We're all about research fundraising, because we believe that's how to move the needle. We've been able to contribu…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A3 Nothing really. Not even the online trolls. #LCSM
Laronica Conway @louisianagirl91
@jillfeldman4 🙌🏾 Yes you are such a role model for others...patients and family members. #lcsm
#LCSM Chat @lcsmchat
RT @Jalapeno448: @JFreemanDaily T2: Shoot, they are all so meaningful! Raising awareness, changing policy, and increasing access to care ar…
Linnea Olson @1111linno
#LCSM T2: I hope to inspire others not only to participate in clinical trials, but also to not be complacent. There is an inherent loss of autonomy when one moves from patient to participant. But we can push that envelope (and I have).
Dana Quinn @Dana1696
@JFreemanDaily T3 It can be extremely frustrating when you don’t feel progress is happening fast enough. #lcsm
Elliot Servais, MD, FACS @ElliotServaisMD
RT @1111linno: #LCSM T2: I hope to inspire others not only to participate in clinical trials, but also to not be complacent. There is an in…
Jill @jillfeldman4
T3 I have to be honest, as someone who was trying to advocate for lc starting 20 years ago when it was difficult to get someone to care, there's not much that discourages me now except stupid side effects of treatment...and the often too slow process #LCSM
#LCSM Chat @lcsmchat
RT @1111linno: #LCSM T2: I hope to inspire others not only to participate in clinical trials, but also to not be complacent. There is an in…
Danielle Pardue @Actorielle
RT @1111linno: #LCSM T2: I think we all discover both our strengths and our weaknesses as well as where our heart is. For me it is medical…
#LCSM Chat @lcsmchat
RT @Dana1696: @JFreemanDaily T3 It can be extremely frustrating when you don’t feel progress is happening fast enough. #lcsm
Laronica Conway @louisianagirl91
@1111linno You TOTALLY need to write a book!! You ARE gonna to write a book aren’t you?! 🤗 #lcsm
Danielle Pardue @Actorielle
RT @JFreemanDaily: T3: What discourages you from participating in cancer advocacy? #LCSM
#LCSM Chat @lcsmchat
RT @jillfeldman4: T3 I have to be honest, as someone who was trying to advocate for lc starting 20 years ago when it was difficult to get s…
Danielle Pardue @Actorielle
RT @1111linno: #LCSM T2: I hope to inspire others not only to participate in clinical trials, but also to not be complacent. There is an in…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Sometimes folks think that, being only one voice, their words are not heard. But one person advocating for #lungcancer patients can do wonders. Just look at some of the folks here tonight. #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @1111linno: #LCSM T2: I hope to inspire others not only to participate in clinical trials, but also to not be complacent. There is an in…
Linnea Olson @1111linno
#LCSM T2: It is my dependance upon and love for clinical research that drives my criticism of the process. Old paradigms are no longer valid. Patients/participants should be real partners. That is a win/win concept.
Laronica Conway @louisianagirl91
@jillfeldman4 I never thought I’d say this, but thank God for these social media platforms! They really can be used for good! 🤗 #lcsm
Laronica Conway @louisianagirl91
RT @jillfeldman4: T3 I have to be honest, as someone who was trying to advocate for lc starting 20 years ago when it was difficult to get s…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Sometimes folks think that, being only one voice, their words are not heard. But one person advocating for #lungcancer pa…
Dee Sparacio @womenofteal
T2 Most rewarding for me is research advocacy and working with my cancer center on cancer equity. #LCSM
#LCSM Chat @lcsmchat
RT @1111linno: #LCSM T2: It is my dependance upon and love for clinical research that drives my criticism of the process. Old paradigms are…
#LCSM Chat @lcsmchat
RT @louisianagirl91: @jillfeldman4 I never thought I’d say this, but thank God for these social media platforms! They really can be used fo…
#LCSM Chat @lcsmchat
RT @womenofteal: T2 Most rewarding for me is research advocacy and working with my cancer center on cancer equity. #LCSM
Danielle Pardue @Actorielle
T3 Disparaging conversations. Recently had one with a prominent citizen of my town. He opined that folks putting themselves at risk for LC (we all know what he meant) had no right to worry about catching covid. Then, he didn't care when I called him out. Cruel. Shook me. #lcsm
#LCSM Chat @lcsmchat
RT @Actorielle: T3 Disparaging conversations. Recently had one with a prominent citizen of my town. He opined that folks putting themselves…
Laronica Conway @louisianagirl91
RT @bjork5: @JFreemanDaily T2 Wow Janet so many great thoughtful advocacy roles here! For me it’s the advocating for a change to how resear…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @1111linno: #LCSM T2: It is my dependance upon and love for clinical research that drives my criticism of the process. Old paradigms are…
Danielle Pardue @Actorielle
RT @1111linno: #LCSM T2: It is my dependance upon and love for clinical research that drives my criticism of the process. Old paradigms are…
Jill @jillfeldman4
T3 I am more encouraged from the army of advocates we have built & the dedicated, passionate scientists, physicians, organizations, etc. It's so inspiring! I will say again though, the pace of change and progress is beyond frustrating & the most discouraging #LCSM
Upstage Lung Cancer @UpstageLungCanc
RT @jillfeldman4: T3 I am more encouraged from the army of advocates we have built & the dedicated, passionate scientists, physicians, orga…
Elliot Servais, MD, FACS @ElliotServaisMD
I was a social media Naysayer for the longest time...I have completely come around! #LCSM
Dave Bjork @bjork5
@JFreemanDaily T3 at first I felt cautious because I’m not a scientist so didn’t want say something that would be wrong, but now I just share what I think is good research and let the scientists explain it #LCSM
Deb Smith 🇺🇸🗽💙🎉🌅🍾 @debsmithbeach
@JFreemanDaily Sometimes, no oomph. #LCSM
Austin Peppers @Jalapeno448
@JFreemanDaily T3: Agree with others. It is quite difficult when the progress we have made is simply not enough. But, we must keep pushing and someday we will make lung cancer a chronic disease that no longer takes our loved ones away. #LCSM
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
@lcsmchat T3 actually nothing because Feel so passionate to share the # 1 cancer of educating the public means one person is saved aStage 4 dx then it’s all worth it #LCSM
Janet Freeman-Daily @JFreemanDaily
Topic T4 is coming up … #LCSM
#LCSM Chat @lcsmchat
T3: Losing rockstar advocates and friends. I do my best to rebound and continue. Deana #LCSM
#LCSM Chat @lcsmchat
RT @jillfeldman4: T3 I am more encouraged from the army of advocates we have built & the dedicated, passionate scientists, physicians, orga…
#LCSM Chat @lcsmchat
RT @ElliotServaisMD: I was a social media Naysayer for the longest time...I have completely come around! #LCSM
#LCSM Chat @lcsmchat
RT @bjork5: @JFreemanDaily T3 at first I felt cautious because I’m not a scientist so didn’t want say something that would be wrong, but no…
I Wear Masks @wildwestannie
T3. I am terribly discouraged by the horrible shadow of politics on science and health care. #LCSM
#LCSM Chat @lcsmchat
RT @debsmithbeach: @JFreemanDaily Sometimes, no oomph. #LCSM
#LCSM Chat @lcsmchat
RT @Kamacintosh: @lcsmchat T3 actually nothing because Feel so passionate to share the # 1 cancer of educating the public means one person…
KRASKickers @kRasKickers
Cruel & Inappropriate #LCSM
#LCSM Chat @lcsmchat
RT @Jalapeno448: @JFreemanDaily T3: Agree with others. It is quite difficult when the progress we have made is simply not enough. But, we m…
#LCSM Chat @lcsmchat
RT @wildwestannie: T3. I am terribly discouraged by the horrible shadow of politics on science and health care. #LCSM
Laronica Conway @louisianagirl91
@JFreemanDaily Ugh. Hitting those invisible brick walls and convincing people why what we want/need to do is IMPORTANT and NECESSARY. The mounds of red tape and bureaucracy! 😡 #lcsm
ann price @aepriceny
@JFreemanDaily @lcsmchat T2-being new have done some fund raising, realize I will alway advocate for myself, there are no stupid questions, I hate the word karma now. Taking time to heal then will see.#LCSM
Jill @jillfeldman4
RT @wildwestannie: T3. I am terribly discouraged by the horrible shadow of politics on science and health care. #LCSM
#LCSM Chat @lcsmchat
RT @louisianagirl91: @JFreemanDaily Ugh. Hitting those invisible brick walls and convincing people why what we want/need to do is IMPORTANT…
#LCSM Chat @lcsmchat
RT @aepriceny: @JFreemanDaily @lcsmchat T2-being new have done some fund raising, realize I will alway advocate for myself, there are no st…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
We must work to shape #lungcancer policy. #LCSM
Janet Freeman-Daily @JFreemanDaily
T4: How does one juggle cancer advocacy with the other roles in life? What factors do you consider when deciding how much time to spend on it? #LCSM
Dave Bjork @bjork5
This! 👇and now with #Covid_19 even more disruption of old paradigms in #clinicaltrials #LCSM
Danielle Pardue @Actorielle
RT @Jalapeno448: @JFreemanDaily T3: Agree with others. It is quite difficult when the progress we have made is simply not enough. But, we m…
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: We must work to shape #lungcancer policy. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T4: How does one juggle cancer advocacy with the other roles in life? What factors do you consider when deciding how mu…
#LCSM Chat @lcsmchat
RT @bjork5: This! 👇and now with #Covid_19 even more disruption of old paradigms in #clinicaltrials #LCSM
Linnea Olson @1111linno
#LCSM T3: I only get discouraged per advocacy when I myself am feeling hopeless. Balancing optimism with stage IV lung cancer is at best a dicey proposition and at times, I feel it is all I can do to hold my own shit together.
Danielle Pardue @Actorielle
RT @jillfeldman4: T3 I am more encouraged from the army of advocates we have built & the dedicated, passionate scientists, physicians, orga…
#LCSM Chat @lcsmchat
RT @1111linno: #LCSM T3: I only get discouraged per advocacy when I myself am feeling hopeless. Balancing optimism with stage IV lung cance…
Danielle Pardue @Actorielle
RT @1111linno: #LCSM T3: I only get discouraged per advocacy when I myself am feeling hopeless. Balancing optimism with stage IV lung cance…
Danielle Pardue @Actorielle
RT @JFreemanDaily: T4: How does one juggle cancer advocacy with the other roles in life? What factors do you consider when deciding how mu…
Eden Lake @EdenLake
Super late to chat... lots going on. Still wanted to be here. #lcsm
#LCSM Chat @lcsmchat
@EdenLake Hi Eden. I’m so sorry for your loss. xo #lcsm
a self-aware hoot @selfawarehoot
RT @rocketgirlmd: 14 years today. Ditto.❤️
Laronica Conway @louisianagirl91
RT @1111linno: #LCSM T3: I only get discouraged per advocacy when I myself am feeling hopeless. Balancing optimism with stage IV lung cance…
Danielle Pardue @Actorielle
T4 It's my whole life. No reason to equivocate. I'm a full-time caregiver, everything else on hold, so helping others get through where we've been has given a direction and purpose to the hours when I'm not helping my folks. Feels like a super-expertise: 24/7 practice. #lcsm
Eden Lake @EdenLake
@1111linno Agreed. Too one sided for too long. Lack of a 'shared' approach discouraged me from one trial I qualified for. #lcsm
Sabin Motwani @sabinbmotwanimd
T3 The tough part of cancer advocacy sometimes is believing in something so strongly, but sometimes not knowing if others will support you or believe in something as strongly as you. #lcsm
Laronica Conway @louisianagirl91
RT @1111linno: #LCSM T2: It is my dependance upon and love for clinical research that drives my criticism of the process. Old paradigms are…
#LCSM Chat @lcsmchat
RT @Actorielle: T4 It's my whole life. No reason to equivocate. I'm a full-time caregiver, everything else on hold, so helping others get t…
#LCSM Chat @lcsmchat
RT @EdenLake: @1111linno Agreed. Too one sided for too long. Lack of a 'shared' approach discouraged me from one trial I qualified for. #lc
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: T3 The tough part of cancer advocacy sometimes is believing in something so strongly, but sometimes not knowing if ot…
Janet Freeman-Daily @JFreemanDaily
When choosing what advocacy project to tackle/accept, I ask myself "How much will it move the needle?" I can't do everything, so I try to be as impactful as possible. #LCSM
Danielle Pardue @Actorielle
RT @sabinbmotwanimd: T3 The tough part of cancer advocacy sometimes is believing in something so strongly, but sometimes not knowing if ot…
kristen kimball @KimballKristen
T4: still working full-time, helping with grandkids (and grateful for opportunity, and knowing Dave would do better...) and wary of taking on what I can’t promise to properly complete. Maybe too wary. #lcsm
Austin Peppers @Jalapeno448
@JFreemanDaily #LCSM
Laronica Conway @louisianagirl91
RT @bjork5: This! 👇and now with #Covid_19 even more disruption of old paradigms in #clinicaltrials #LCSM
Upstage Lung Cancer @UpstageLungCanc
RT @JFreemanDaily: When choosing what advocacy project to tackle/accept, I ask myself "How much will it move the needle?" I can't do everyt…
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
@lcsmchat T4 COVID-19 has been very difficult unable to advocate and dealing with treatment, sometimes need to regroup for bit. Advocacy work and Lung Cancer awareness is more difficult in Canada #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: When choosing what advocacy project to tackle/accept, I ask myself "How much will it move the needle?" I can't do everyt…
#LCSM Chat @lcsmchat
RT @KimballKristen: T4: still working full-time, helping with grandkids (and grateful for opportunity, and knowing Dave would do better...)…
Linnea Olson @1111linno
#LCSM T3: So I'm hoping there is a question coming as to what keeps me going in advocacy...y'all. The silver lining to this shitty diagnosis.
Upstage Lung Cancer @UpstageLungCanc
T4 We do the best we can. We're all volunteers. But we have to figure that some progress or contribution is better than none <3 #lcsm
Dave Bjork @bjork5
@JFreemanDaily T4 another great question. For me it’s balancing my day job in another disease area with being a lung cancer advocate. It is difficult but I just have to find balance. My commitment is always there tho 🙌💯 #LCSM #research
#LCSM Chat @lcsmchat
Many have had similar experiences with @AmericanCancer #lcsm
Janet Freeman-Daily @JFreemanDaily
I hate to turn down any #cancer advocacy project, but my health and family have to take priority, even for a full-time advocate. #LCSM
Julia Maués @itsnot_pink
T2: helping a newly diagnosed person be empowered, ask questions, speak up about their values and preferences is very special. Also, showing a researcher that doesn’t meet patients that their hard work is impacting real lives is one of the most amazing feelings. #lcsm
Jill @jillfeldman4
T4 NO amount of therapy could helped me through my losses or own dx like my advocacy - it allows me to choose the role that lc has in my life. It gives any emotional & physical pain a purpose. #LCSM
Deb Smith 🇺🇸🗽💙🎉🌅🍾 @debsmithbeach
RT @1111linno: #LCSM T2: It is my dependance upon and love for clinical research that drives my criticism of the process. Old paradigms are…
#LCSM Chat @lcsmchat
RT @Kamacintosh: @lcsmchat T4 COVID-19 has been very difficult unable to advocate and dealing with treatment, sometimes need to regroup for…
#LCSM Chat @lcsmchat
RT @1111linno: #LCSM T3: So I'm hoping there is a question coming as to what keeps me going in advocacy...y'all. The silver lining to this…
#LCSM Chat @lcsmchat
RT @UpstageLungCanc: T4 We do the best we can. We're all volunteers. But we have to figure that some progress or contribution is better tha…
#LCSM Chat @lcsmchat
RT @bjork5: @JFreemanDaily T4 another great question. For me it’s balancing my day job in another disease area with being a lung cancer adv…
Jeff Julian @CoachJeffJulian
@JFreemanDaily T4: That’s my struggle the most, but the community has always been welcoming, so I just do all I can, when I can. One talk, one advocacy summit, or one phone conversation with a newly diagnosed patient at a time and then seen what I can do next. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: I hate to turn down any #cancer advocacy project, but my health and family have to take priority, even for a full-time a…
#LCSM Chat @lcsmchat
RT @itsnot_pink: T2: helping a newly diagnosed person be empowered, ask questions, speak up about their values and preferences is very spec…
#LCSM Chat @lcsmchat
RT @jillfeldman4: T4 NO amount of therapy could helped me through my losses or own dx like my advocacy - it allows me to choose the role th…
Jill @jillfeldman4
T4 But I do take summers off (for the most part) and work at overnight camp for two months...except this summer :( Everyone needs some escape & time to recharge #LCSM
#LCSM Chat @lcsmchat
RT @CoachJeffJulian: @JFreemanDaily T4: That’s my struggle the most, but the community has always been welcoming, so I just do all I can, w…
#LCSM Chat @lcsmchat
RT @jillfeldman4: T4 But I do take summers off (for the most part) and work at overnight camp for two months...except this summer :( Every…
Janet Freeman-Daily @JFreemanDaily
@1111linno Feel free to share silver linings anytime during #LCSM Chat, Linnea!
KRASKickers @kRasKickers
Precisely @jillfeldman4 #LCSM
Patty Watkins @Pattybeatslungc
@ElliotServaisMD @lcsmchat #LCSM
Danielle Pardue @Actorielle
RT @itsnot_pink: T2: helping a newly diagnosed person be empowered, ask questions, speak up about their values and preferences is very spec…
Laronica Conway @louisianagirl91
@JFreemanDaily T4: for me it was easy at first because I had already quit working to take care of mom. So the first 2 yrs as an advocate WAS my job, along with volunteering at the cancer center. Once I got full time work, I had to step back. It was painful, but necessary! 😔#lcsm
Danielle Pardue @Actorielle
RT @lcsmchat: Many have had similar experiences with @AmericanCancer #lcsm https://t.co/mexvbJZZbQ
Janet Freeman-Daily @JFreemanDaily
Last topic T5 is on the way … #LCSM
Dave Bjork @bjork5
@1111linno You are always so honest Linnea and it shines through. Your authenticity and determination are so inspiring to this community ❤️ #lcsm #gratitude #lungcancer
#LCSM Chat @lcsmchat
RT @louisianagirl91: @JFreemanDaily T4: for me it was easy at first because I had already quit working to take care of mom. So the first 2…
Nina Davis @ Australian Teacher & Manufacturer @ninadavis
As an advocate, I always remember that my father said it’s better to know 2/10 of FA than nothing. Well, I know less than that, but I know more than I did. I ask questions which gives me a better understanding and agency. He also said there are no dumb questions. #LCSM
Sabin Motwani @sabinbmotwanimd
T4. With all things in life...there must be a healthy balance. Be a strong cancer advocate, but don't forget to breathe, smile, eat, explore near and far, laugh, and talk to friends &family. #lcsm
#LCSM Chat @lcsmchat
RT @ninadavis: As an advocate, I always remember that my father said it’s better to know 2/10 of FA than nothing. Well, I know less than th…
Danielle Pardue @Actorielle
An excellent way to think about this! #lcsm
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: T4. With all things in life...there must be a healthy balance. Be a strong cancer advocate, but don't forget to brea…
Ian Pereira @IanJPereira
RT @sabinbmotwanimd: T4. With all things in life...there must be a healthy balance. Be a strong cancer advocate, but don't forget to brea…
Janet Freeman-Daily @JFreemanDaily
T5: If someone told you they were interested in becoming a cancer advocate, what would you say to them? #LCSM
Linnea Olson @1111linno
#LCSM T4: At this point, my life is totally cancer centric--unapologetically so. Advocacy/activism, art, my blog, online dating. I am upfront and out there and totally unapologetic. Even my family is totally onboard now--they understand this is important.
#LCSM Chat @lcsmchat
RT @JFreemanDaily: T5: If someone told you they were interested in becoming a cancer advocate, what would you say to them? #LCSM
Dave Bjork @bjork5
@lcsmchat @AmericanCancer Oh that’s so bad. #lcsm
#LCSM Chat @lcsmchat
RT @1111linno: #LCSM T4: At this point, my life is totally cancer centric--unapologetically so. Advocacy/activism, art, my blog, online dat…
Laronica Conway @louisianagirl91
@JFreemanDaily T4 I HAD to find other ways. And I was blessed, lucky, whatever you want to call it, to end up actually working in #radOnc. And to be more hands on helping patients who are going through what mom went through. My passion is now a career! 😚🙌🏾 #lcsm
Kelly Wright MD @MigsRunner
RT @rocketgirlmd: 14 years today. Ditto.❤️ https://t.co/3JHbcQqXxD
Jill @jillfeldman4
T4 When deciding what advocacy I do I think about whether or not I would provide value AND always if there is someone else who could and/or would be better. #LCSM
Dana Quinn @Dana1696
@JFreemanDaily T4-I vowed to never stop fighting on behalf of my parents & I try to do all I can for both the lung & pancreatic cancer communities. They deserved better than to die just months from their diagnosis & I don’t want other daughters to watch their parents suffer as I did mine. #lcsm
#LCSM Chat @lcsmchat
RT @louisianagirl91: @JFreemanDaily T4 I HAD to find other ways. And I was blessed, lucky, whatever you want to call it, to end up actually…
#LCSM Chat @lcsmchat
RT @jillfeldman4: T4 When deciding what advocacy I do I think about whether or not I would provide value AND always if there is someone els…
Danielle Pardue @Actorielle
T4 let's face it: it's difficult/impossible for a full-time caregiver to take "time off" in any real capacity, so asking us how much time we devote to advocacy will usually result in us saying that we don't stop. Can't stop. Secret: most of us wouldn't even if we could. <3 #lcsm
Laronica Conway @louisianagirl91
@debsmithbeach Deb!!! Heeeyyy!! 💕💕👋🏾👋🏾 #lcsm
KRASKickers @kRasKickers
T5 Each person has their own definition - what does this mean to you? #LCSM
#LCSM Chat @lcsmchat
RT @Dana1696: @JFreemanDaily T4-I vowed to never stop fighting on behalf of my parents & I try to do all I can for both the lung & pancreat…
#LCSM Chat @lcsmchat
RT @Actorielle: T4 let's face it: it's difficult/impossible for a full-time caregiver to take "time off" in any real capacity, so asking us…
Danielle Pardue @Actorielle
RT @1111linno: #LCSM T4: At this point, my life is totally cancer centric--unapologetically so. Advocacy/activism, art, my blog, online dat…
Danielle Pardue @Actorielle
RT @JFreemanDaily: T5: If someone told you they were interested in becoming a cancer advocate, what would you say to them? #LCSM
Julia Maués @itsnot_pink
T3 I wouldn’t say I’m discouraged by it, but sometimes I need a break after tough losses. The friendships haven’t been long, but they have been deep. Plus, losing someone who has your same disease adds the reminder of your own mortality. Hard, hard stuff #lcsm
#LCSM Chat @lcsmchat
RT @kRasKickers: T5 Each person has their own definition - what does this mean to you? #LCSM
Gina @EAustin1969
T5: do it but use your strengths #lcsm
#LCSM Chat @lcsmchat
RT @itsnot_pink: T3 I wouldn’t say I’m discouraged by it, but sometimes I need a break after tough losses. The friendships haven’t been lon…
#LCSM Chat @lcsmchat
RT @EAustin1969: T5: do it but use your strengths #lcsm
Elliot Servais, MD, FACS @ElliotServaisMD
T5: I would tell them to connect with all the advocates on LCSM. I’m inspired by the commitment, passion, and honesty of everyone here. #lcsm
Dr. David Tom Cooke @DavidCookeMD
A5 Get your ass to #LCSM! https://t.co/JZjXK4zi7b
Janet Freeman-Daily @JFreemanDaily
When someone tells me they want to be a cancer advocate, I ask them "Which of your skills gives you the most joy?" Advocacy is a marathon. You have to enjoy what you're doing or you can't stick with it. #LCSM
Jill @jillfeldman4
T5 Do what works for you & interests you. Start slow & it will evolve naturally. Advocacy needs to benefit you as well. It should be energizing, not depleting! #LCSM
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
RT @EAustin1969: T5: do it but use your strengths #lcsm
#LCSM Chat @lcsmchat
T5: There are many different ways to be an advocate. Find the way(s) that work for you. Deana #LCSM
Dennis Keim @denniskeim
RT @itsnot_pink: T3 I wouldn’t say I’m discouraged by it, but sometimes I need a break after tough losses. The friendships haven’t been lon…
Dr. David Tom Cooke @DavidCookeMD
RT @ElliotServaisMD: T5: I would tell them to connect with all the advocates on LCSM. I’m inspired by the commitment, passion, and honesty…
#LCSM Chat @lcsmchat
RT @ElliotServaisMD: T5: I would tell them to connect with all the advocates on LCSM. I’m inspired by the commitment, passion, and honesty…
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A5 Get your ass to #LCSM! https://t.co/JZjXK4zi7b
Julia Maués @itsnot_pink
T4 I have nothing to add to T4. Need to hear solutions because I’m not doing a good job at this 🤣 #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: When someone tells me they want to be a cancer advocate, I ask them "Which of your skills gives you the most joy?" Advoc…
#LCSM Chat @lcsmchat
RT @jillfeldman4: T5 Do what works for you & interests you. Start slow & it will evolve naturally. Advocacy needs to benefit you as well. I…
#LCSM Chat @lcsmchat
RT @itsnot_pink: T4 I have nothing to add to T4. Need to hear solutions because I’m not doing a good job at this 🤣 #lcsm
Austin Peppers @Jalapeno448
T4: Old tweet: "THIS is why I don't mind long nights in the lab. My mom will never get to meet my children, but being part in helping give others those moments is truly a honor." When I am tired, I think of those who are more tired. But, knowing limits is important too. #LCSM
#LCSM Chat @lcsmchat
RT @Jalapeno448: T4: Old tweet: "THIS is why I don't mind long nights in the lab. My mom will never get to meet my children, but being par…
Ian Pereira @IanJPereira
Ian from Canada - just checking in for a little bit to learn from #lcsm!
Linnea Olson @1111linno
#LCSM T4: When I was first diagnosed with lung cancer it felt like a personal tragedy. With time it has become an opportunity. I was raised in a family where community service was integral and I feel it's safe to say I have found my cause.
Jill @jillfeldman4
RT @Jalapeno448: T4: Old tweet: "THIS is why I don't mind long nights in the lab. My mom will never get to meet my children, but being par…
Triage Cancer @TriageCancer
T5 We have free resources available to help people find the advocacy role/tasks most suited to them (their preferences, time, skills, etc). We also try and explain different advocacy options, so that they can understand the potential impact. See: https://t.co/Og0G46Vr5I #lcsm
Laronica Conway @louisianagirl91
RT @1111linno: #LCSM T4: When I was first diagnosed with lung cancer it felt like a personal tragedy. With time it has become an opportunit…
Dave Bjork @bjork5
@JFreemanDaily T5 Janet and Deana you are on 🔥 tonight with great questions! I tell them to be yourself, find your voice, share your story and be consistent. @prlzie #lcsm
#LCSM Chat @lcsmchat
RT @1111linno: #LCSM T4: When I was first diagnosed with lung cancer it felt like a personal tragedy. With time it has become an opportunit…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
There is a role for #lungcancer advocacy in everyone's life, no matter what one's status - patient, family, doctor, nurse, researcher... All perspectives need to be heard to make a strong advocacy voice. #lcsm
Laronica Conway @louisianagirl91
RT @Jalapeno448: T4: Old tweet: "THIS is why I don't mind long nights in the lab. My mom will never get to meet my children, but being par…
Danielle Pardue @Actorielle
RT @1111linno: #LCSM T4: When I was first diagnosed with lung cancer it felt like a personal tragedy. With time it has become an opportunit…
#LCSM Chat @lcsmchat
RT @TriageCancer: T5 We have free resources available to help people find the advocacy role/tasks most suited to them (their preferences, t…
Danielle Pardue @Actorielle
RT @Jalapeno448: T4: Old tweet: "THIS is why I don't mind long nights in the lab. My mom will never get to meet my children, but being par…
KRASKickers @kRasKickers
Brilliant- #LCSM
Danielle Pardue @Actorielle
RT @JFreemanDaily: When someone tells me they want to be a cancer advocate, I ask them "Which of your skills gives you the most joy?" Advoc…
Laronica Conway @louisianagirl91
@Jalapeno448 I like this! 💕#lcsm
#LCSM Chat @lcsmchat
@bjork5 @JFreemanDaily @prlzie Totally Janet, but thanks for including me. xo #lcsm
Dr. David Tom Cooke @DavidCookeMD
A5 If a patient asks "Is there a clinical trial for me?" BOOM! They are an advocate. #LCSM
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: There is a role for #lungcancer advocacy in everyone's life, no matter what one's status - patient, family, doctor, nurs…
Julia Maués @itsnot_pink
T5: Some organizations have great training. In breast cancer, @LivingBeyondBC has a program called #Hearmyvoice that gives a very broad overview of MBC advocacy (ie, all possible paths). When the person finds what they like, they can start going deeper #lcsm
Linnea Olson @1111linno
#LCSM T4: I have also learned that showing up is HUGE. Thank you #LCSM for both representing and continuously showing up. You are inspirational and incredible. xoxo
Upstage Lung Cancer @UpstageLungCanc
Exactly right! This is how our founder chose her path, after learning what she learned from her dx. #lcsm
#LCSM Chat @lcsmchat
RT @bjork5: @JFreemanDaily T5 Janet and Deana you are on 🔥 tonight with great questions! I tell them to be yourself, find your voice, share…
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @DavidCookeMD: A5 If a patient asks "Is there a clinical trial for me?" BOOM! They are an advocate. #LCSM
Laronica Conway @louisianagirl91
THIS PART!!! 🙌🏾🙌🏾 #lcsm
#LCSM Chat @lcsmchat
RT @DavidCookeMD: A5 If a patient asks "Is there a clinical trial for me?" BOOM! They are an advocate. #LCSM
KRASKickers @kRasKickers
@TimAllenMDJD So true! Standing up for yourself, or others is Advocacy! #LCSM
#LCSM Chat @lcsmchat
RT @itsnot_pink: T5: Some organizations have great training. In breast cancer, @LivingBeyondBC has a program called #Hearmyvoice that gives…
kristen kimball @KimballKristen
@kRasKickers True! Husband Dave had his own ideas about advocacy. E.g., wrote about his experience w/ LC and clinical trials (e.g., pieces published by Boston’s NPR station, an interview.) Did whatever his onc, Lecia Sequist, MGH, suggested. Gave lecture to grad class in cancer bio. #lcsm
#LCSM Chat @lcsmchat
RT @1111linno: #LCSM T4: I have also learned that showing up is HUGE. Thank you #LCSM for both representing and continuously showing up. Yo…
Sabin Motwani @sabinbmotwanimd
T5 Listen to what others are advocating for. Is this something you believe in? If so, join them. Don't lose sight of your own voice and what you believe in. It may take time, but remember to enjoy the journey, and embrace the challenges and opportunities. #LCSM
#LCSM Chat @lcsmchat
RT @UpstageLungCanc: Exactly right! This is how our founder chose her path, after learning what she learned from her dx. #lcsm
Danielle Pardue @Actorielle
RT @TimAllenMDJD: There is a role for #lungcancer advocacy in everyone's life, no matter what one's status - patient, family, doctor, nurs…
#LCSM Chat @lcsmchat
RT @KimballKristen: @kRasKickers True! Husband Dave had his own ideas about advocacy. E.g., wrote about his experience w/ LC and clinical…
Danielle Pardue @Actorielle
RT @TriageCancer: T5 We have free resources available to help people find the advocacy role/tasks most suited to them (their preferences, t…
#LCSM Chat @lcsmchat
RT @sabinbmotwanimd: T5 Listen to what others are advocating for. Is this something you believe in? If so, join them. Don't lose sight of…
Janet Freeman-Daily @JFreemanDaily
We’re in our final minutes - closing thoughts? #LCSM
Kim Moran-MacIntosh 🇨🇦 @Kamacintosh
@lcsmchat and @JFreemanDaily ty this was inspiring and insightful #lcsm
Laronica Conway @louisianagirl91
@JFreemanDaily Be prepared for disappointments, but always remember the purpose and why it’s important to you. 💕💕 #lcsm
Danielle Pardue @Actorielle
RT @kRasKickers: @TimAllenMDJD So true! Standing up for yourself, or others is Advocacy! #LCSM
Dave Bjork @bjork5
@lcsmchat @JFreemanDaily @prlzie Lol 😂 #lcsm
Ian Pereira @IanJPereira
@JFreemanDaily Boundaries? We're externally expected to advocate on behalf of our patients, but often internally the expectations differ. I often wish both were more aligned, or at least realistically portrayed. #lcsm T3
Dr. David Tom Cooke @DavidCookeMD
RT @Kamacintosh: @lcsmchat and @JFreemanDaily ty this was inspiring and insightful #lcsm
Maram Museitif @MaramMPH
@JFreemanDaily T4. There’s no time limits in saving lives. It’s a life mission that I have invested in, I do take into account working with the right organization’s/ people that can make a difference in preventing cancer. #lcsm
KRASKickers @kRasKickers
It takes ALL of us #LCSM
Linnea Olson @1111linno
#LCSM T5: I wouldn't discourage them :) LOVE YOU ALL!
Hansini Laharwani @HansiniMD
RT @TimAllenMDJD: There is a role for #lungcancer advocacy in everyone's life, no matter what one's status - patient, family, doctor, nurs…
Danielle Pardue @Actorielle
Thank you, #LCSM, as always, for helping so many of us find our way and keep in touch and signal boost each others' work and impact <3 <3 <3
#LCSM Chat @lcsmchat
I see so many of you out there watching quietly. Thanks for joining us tonight. Please send us a blank tweet with the #lcsm hashtag so everyone knows you’re here. We’re a friendly bunch. Really. #lcsm
Jill @jillfeldman4
Thank you @JFreemanDaily & @LungCancerFaces for a fantastic discussion! #LCSM
Andrea Downing☀️ @BraveBosom
Too many in healthcare and the industry take advantage of advocates. I am starting to say no and setting better boundaries. Advocacy is not sustainable and that’s by design. #LCSM
Andrea Borondy Kitts @findlungcancer
Some of my patients with advanced disease must choose between two options: an expensive novel therapy with lim... https://t.co/BnfJzODwq0 #lcsm #bcsm
#LCSM Chat @lcsmchat
RT @MaramMPH: @JFreemanDaily T4. There’s no time limits in saving lives. It’s a life mission that I have invested in, I do take into accoun…
Patty Watkins @Pattybeatslungc
@1111linno #LCSM
#LCSM Chat @lcsmchat
RT @IanJPereira: @JFreemanDaily Boundaries? We're externally expected to advocate on behalf of our patients, but often internally the expe…
#LCSM Chat @lcsmchat
RT @louisianagirl91: @JFreemanDaily Be prepared for disappointments, but always remember the purpose and why it’s important to you. 💕💕 #lc
#LCSM Chat @lcsmchat
RT @JFreemanDaily: We’re in our final minutes - closing thoughts? #LCSM
Julia Maués @itsnot_pink
@JFreemanDaily Thank you, #Lcsm crew, for the broad topic. Nice “hanging out” with you all!
Ian Pereira @IanJPereira
@Jalapeno448 @JFreemanDaily Curious - how did you get over it? I find cancer advocacy can be full of these not-so-little discouragements that may be the tip of an iceberg. #lcsm T3
Laronica Conway @louisianagirl91
@JFreemanDaily I SOOOO missed y’all! Must find the time to do this more often! Y’all are never far from my heart! Becoming an advocate helped me with my grief. Full stop. 😔☺️💕 #lcsm
#LCSM Chat @lcsmchat
#lcsm
Gina @EAustin1969
Great chat tonight... thank y’all #LCSM
Dee Sparacio @womenofteal
RT @sabinbmotwanimd: T5 Listen to what others are advocating for. Is this something you believe in? If so, join them. Don't lose sight of…
#LCSM Chat @lcsmchat
RT @IanJPereira: @Jalapeno448 @JFreemanDaily Curious - how did you get over it? I find cancer advocacy can be full of these not-so-little…
#LCSM Chat @lcsmchat
RT @louisianagirl91: @JFreemanDaily I SOOOO missed y’all! Must find the time to do this more often! Y’all are never far from my heart! Beco…
Ian Pereira @IanJPereira
RT @JFreemanDaily: When someone tells me they want to be a cancer advocate, I ask them "Which of your skills gives you the most joy?" Advoc…
Triage Cancer @TriageCancer
Thank you so much for hosting, @jfreeman and @lcsmchat! It was a joy to be here. #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Tonight's #lcsm twitterchat is a strong reminder of the value the #lcsm team provides. It remains a privilege to participate.
#LCSM Chat @lcsmchat
Love all our cancer peeps! Thanks @JFreemanDaily for this excellent chat. Deana #LCSM
Nina Davis @ Australian Teacher & Manufacturer @ninadavis
Advocacy & Agency...Positive talk motivates positive action. Many positives in LC research & treatment = more advocates. Positive promotion & hope combined = greater funding & a community that understands LC can happen to anyone with lungs will buy in. #LCSM
Dave Bjork @bjork5
@JFreemanDaily Don’t be afraid to speak up and find your voice. We need all different skills and interests as a community to have an impact and make a difference. Thanks @lcsmchat @JFreemanDaily for a great chat tonight ❤️ #lcsm
Patty Watkins @Pattybeatslungc
@1111linno I just got referred to Neuro Onc for Alzheimer Med. CRS disease #LCSM
Janet Freeman-Daily @JFreemanDaily
Glad to see familiar Twitter handles as well as new participants in #LCSM Chat tonight! Thanks for joining us to talk about #cancer advocacy.
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Tonight's #lcsm twitterchat is a strong reminder of the value the #lcsm team provides. It remains a privilege to partici…
#LCSM Chat @lcsmchat
RT @bjork5: @JFreemanDaily Don’t be afraid to speak up and find your voice. We need all different skills and interests as a community to ha…
Patty Watkins @Pattybeatslungc
RT @JFreemanDaily: When someone tells me they want to be a cancer advocate, I ask them "Which of your skills gives you the most joy?" Advoc…
kristen kimball @KimballKristen
@JFreemanDaily Just thank you. It is comforting to have a place in this advocacy family. <3 to you all. #LCSM
#LCSM Chat @lcsmchat
RT @ninadavis: Advocacy & Agency...Positive talk motivates positive action. Many positives in LC research & treatment = more advocates. Pos…
KRASKickers @kRasKickers
@lcsmchat @JFreemanDaily Thanks ALL #LCSM
Upstage Lung Cancer @UpstageLungCanc
Thank you for the fantastic, enlightening, educational, inspirational chat (as always) #lcsm! @JFreemanDaily @LungCancerFaces @lcsmchat
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Glad to see familiar Twitter handles as well as new participants in #LCSM Chat tonight! Thanks for joining us to talk a…
Dennis Keim @denniskeim
RT @JFreemanDaily: When someone tells me they want to be a cancer advocate, I ask them "Which of your skills gives you the most joy?" Advoc…
Dana Quinn @Dana1696
@JFreemanDaily T5-I meet many, who like me, have lost a loved one to cancer so it can be hard for people to take that step. So much of being an advocate is sharing ur personal story & that is not easy after a loss. #lcsm
Patty Watkins @Pattybeatslungc
@JFreemanDaily #LCSM
Maram Museitif @MaramMPH
@JFreemanDaily @IanJPereira 💯%!!! If you have no passion you will never succeed in your mission. #lcsm
Dee Sparacio @womenofteal
T5 We advocates can learn from each other . And work together to support each other as we support cancer patients/ survivors. #lcsm
Patty Watkins @Pattybeatslungc
@1111linno The reason I forget to put #LCSM
Patty Watkins @Pattybeatslungc
RT @jmeberth: T2: The most meaningful part of advocacy to me is changing (or hoping to change) policies that unfairly advantage some patien…
Patty Watkins @Pattybeatslungc
RT @JFreemanDaily: T5: If someone told you they were interested in becoming a cancer advocate, what would you say to them? #LCSM
Janet Freeman-Daily @JFreemanDaily
#LCSM
Ian Pereira @IanJPereira
@JFreemanDaily Advocacy, at work or at home, is one of the few recharging parts of my day. The feedback I sometimes get from patients, whether gratitude or something I can improve on, is what is exceptionally and genuinely rewarding. #lcsm T4
Ian Pereira @IanJPereira
RT @TimAllenMDJD: There is a role for #lungcancer advocacy in everyone's life, no matter what one's status - patient, family, doctor, nurs…
Ian Pereira @IanJPereira
@JFreemanDaily How can I help? Because what I can't do alone, I try to do together. #lcsm T5
Janet Freeman-Daily @JFreemanDaily
#LCSM
Janet Freeman-Daily @JFreemanDaily
#LCSM
Ian Pereira @IanJPereira
RT @DavidCookeMD: A5 If a patient asks "Is there a clinical trial for me?" BOOM! They are an advocate. #LCSM https://t.co/mdpMHaUwEL
Janet Freeman-Daily @JFreemanDaily
#LCSM
Janet Freeman-Daily @JFreemanDaily
#LCSM
Ian Pereira @IanJPereira
@DavidCookeMD I often wonder about this collaborative community mentality, and how it has shaped (some of the best?) healthcare systems around the world. Cancer advocacy can seem really hard (here), but is it hard everywhere? #lcsm #UHC? T5
Janet Freeman-Daily @JFreemanDaily
#LCSM
Ian Pereira @IanJPereira
RT @sabinbmotwanimd: T5 Listen to what others are advocating for. Is this something you believe in? If so, join them. Don't lose sight of…
Dee Sparacio @womenofteal
@JFreemanDaily You would think after all these years I would remember to add the hashtag. Lol #lcsm great topic!
Ian Pereira @IanJPereira
@sabinbmotwanimd Reminds me that sometimes... #lcsm https://t.co/1Y09oqOJk4
#LCSM content from Twitter.