#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Janet Freeman-Daily @JFreemanDaily Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https://t.co/5dTHsmCN7s |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/… |
 | OncLive.com @OncLive Capmatinib Continues to Show Significant Antitumor Activity in METex14+ NSCLC #lcsm. https://t.co/uYicS0Uszm |
| @LungCancerFaces RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/… | |
 | Danielle Pardue @Actorielle RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/… |
 | Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/… |
| Danielle Pardue @Actorielle #lcsm Hi, friends! SO happy to be here. Feels like a family reunion when I log into this chat, as always. Danielle here: caregiver and advocate. Tuning in from NC. |
| Janet Freeman-Daily @JFreemanDaily We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM |
 | Triage Cancer @TriageCancer #LCSM Good evening! Honored to be here! We are a national nonprofit providing free education and resources on the legal and practical issues faced by people after a cancer diagnosis. Thrilled to learn from this chat this evening! #beyonddiagnosis |
 | Deb 🌅 @debsmithbeach Deb, from NH, checking in. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We'll get started in a few minutes -- please take a moment to introduce yourselves #LCSM |
| #LCSM Chat @lcsmchat @Actorielle Welcome! How’s mom? #lcsm |
| #LCSM Chat @lcsmchat @TriageCancer Welcome! #lcsm |
 | Charu Aggarwal, MD, MPH, FASCO @CharuAggarwalMD @JFreemanDaily Hi everyone, Thoracic Medical Oncologist at @penncancer joining in from Philly. Looking forward to an engaging discussion #LCSM |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily (writer, science geek, #lungcancer patient/research advocate). #LCSM |
| #LCSM Chat @lcsmchat @debsmithbeach Hi Deb! #lcsm |
 | yetAnotherName @glostaMAssachu Betsy here, checking in #Lcsm |
 | KRASKickers @KRASKickers #LCSM Hi All Terri here my-first time |
| Upstage Lung Cancer @UpstageLungCanc #lcsm So excited to be here, friends! We are a performing arts-based lung cancer research fundraising organization based in Boston. Always happy when we can participate in these chats. Thank you for hosting! |
 | Derek Clay @DMANfame BOTOX BABY 💖 Thank you @crmcaesthetics for keeping your facility #safe & #clean especially during this time. The process is always fast, simple, & painless. Always a pleasure with skinsandneedles_ 😘 #botox #selfcare… https://t.co/EOpCj2W4mK |
 | Jill Feldman @jillfeldman4 Hi Everyone, Jill here. Looking forward to this discussion! #LCSM |
| #LCSM Chat @lcsmchat @CharuAggarwalMD @JFreemanDaily @PennCancer Thanks for joining! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily (writer, science geek, #lungcancer patient/research advocate). #LCSM |
 | Linnea Olson @1111linno Good evening :) #lcsm |
 | Dave Bjork @bjork5 @CharuAggarwalMD @JFreemanDaily @PennCancer Yay @Penn 🙌😎 #lcsm |
| #LCSM Chat @lcsmchat @wildwestannie Hey Betsy! #lcsm |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here. #lcsm |
| Danielle Pardue @Actorielle @JFreemanDaily And superhero, and genius, and so much more! #lcsm |
 | Arpan Patel @ArpanAshokPatel Hello Everyone! Chiming in from Wilmot Cancer Center, Rochester NY. #lcsm |
| #LCSM Chat @lcsmchat @kRasKickers Hi Terri! #lcsm |
| #LCSM Chat @lcsmchat @UpstageLungCanc Welcome! #lcsm |
| @jmeberth @JFreemanDaily @lcsmchat Hi Janet. Looking forward to tonight’s chat! #LCSM | |
| Dave Bjork @bjork5 @JFreemanDaily Hey Janet! Dave here, research evangelist from Boston 🙌 #lcsm |
| #LCSM Chat @lcsmchat @1111linno Woo Hoo! Linnea! #lcsm |
| Janet Freeman-Daily @JFreemanDaily If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb |
| #LCSM Chat @lcsmchat @bjork5 @CharuAggarwalMD @JFreemanDaily @PennCancer @Penn Hey Dave! #lcsm |
| #LCSM Chat @lcsmchat @TimAllenMDJD Hi Tim! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… |
| #LCSM Chat @lcsmchat @ArpanAshokPatel Welcome! #lcsm |
| #LCSM Chat @lcsmchat @jmeberth @JFreemanDaily Thanks for joining! #lcsm |
 | Elliot Servais, MD, FACS @ElliotServaisMD Hi all - thoracic surgeon at Lahey in MA. newbie on Twitter...first ever TweetChat for me. Looking forward to discussion #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… |
| #LCSM Chat @lcsmchat @ElliotServaisMD Welcome! We were all newbies once. #lcsm |
| Dave Bjork @bjork5 @1111linno Hi Linnea! 😊 #lcsm |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them. If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Howdy! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them. If you prefer just to… |
| Janet Freeman-Daily @JFreemanDaily Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM |
| KRASKickers @KRASKickers @ElliotServaisMD Hi - my first too #LCSM |
| @jmeberth #LCSM Hi everyone... Jan Eberth, epidemiologist here from @UofSC @RMHRC_UofSC. Population health scientist with passion for cancer equity research and advocacy! | |
 | Laronica Conway @louisianagirl91 RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/… |
| @LungCancerFaces Deana here! I’ll be tweeting from the @lcsmchat account tonight. #lcsm | |
| Upstage Lung Cancer @UpstageLungCanc @ElliotServaisMD Welcome! We love our friendship with Lahey! Thank you for your work! #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/… |
| Dave Bjork @bjork5 @ElliotServaisMD Hey Elliot, welcome...I’m in Georgetown, MA #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not displa… |
| Laronica Conway @louisianagirl91 Heeeeyy #LCSM family! Hanging out for a bit from Birmingham, Ala. #lcsm |
| Janet Freeman-Daily @JFreemanDaily I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM |
| #LCSM Chat @lcsmchat @louisianagirl91 Hey Roni! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #L… |
| Dave Bjork @bjork5 @LungCancerFaces @lcsmchat Hey Deana! 😊 #lcsm |
 | Run100-2Inspire @Aggitator673 Starting to find the joy of running again. #thinkingofHannah #mentalhealthawareness #IRunForKelly #cancersucks #greencompasscbd #greencompasscbdoil #greencompass #cbd #cbdhealth https://t.co/bh72QnhCuU |
| @Pattybeatslungc @JFreemanDaily @lcsmchat #LCSM | |
| Laronica Conway @louisianagirl91 @Actorielle 💕💕💕 Omg we TOTALLY need to catch up!!! #LCSM |
| KRASKickers @KRASKickers @louisianagirl91 Hi Laronica #LCSM |
 | Austin Peppers, MD @Jalapeno448 Austin from Worcester, MA here for my first chat! #LCSM |
| #LCSM Chat @lcsmchat Please say hi if you’re out there. I see a few of you quiet tweeps. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1: How do you define cancer advocacy? Is it advocating for yourself, other patients, one type of cancer, all cancers? Do all of these require the same skills, time commitment, education? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T1: How do you define cancer advocacy? Is it advocating for yourself, other patients, one type of cancer, all cancers? D… |
 | A. Jay's Fight @AJaysFight1 #foodallergies #EoEawareness #ajaysfight https://t.co/Q5gIHjxrSV |
| #LCSM Chat @lcsmchat @Jalapeno448 Welcome! We are thrilled to have 3 first timers tonight. #lcsm |
| Laronica Conway @louisianagirl91 @kRasKickers #lcsm 💕💕💕💕 https://t.co/RHytqTtpAQ |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1: How do you define cancer advocacy? Is it advocating for yourself, other patients, one type of cancer, all cancers? D… |
 | Wendy Ng @wendykyngmd When you finish your charting, and a sweet nurse gives you a chocolate covered strawberry. 😋 . . It's healthy because there's fruit in it, right? 😉 . .#plasticsurgery #plasticsurgeon #woundcare #teameffort #chocolate… https://t.co/Ft8KeOQTvq |
| #LCSM Chat @lcsmchat @Pattybeatslungc @JFreemanDaily Hey Patty! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: How do you define cancer advocacy? Is it advocating for yourself, other patients, one type of cancer, all cancers? D… |
| @KimballKristen Kris from Boston, “legacy” caregiver, currently teaching A&P online in the AM, babysitting the grands in the afternoon, and is determined to honor husband Dave (who left us one year ago last Monday) through lung cancer advocacy. Hi! #LCSM (helps to get acronym straight) | |
| Jill Feldman @jillfeldman4 T1 Advocating for yourself is the first step in advocacy & the most important. It's like air safety - put your mask on before your child's! #LCSM |
| #LCSM Chat @lcsmchat @KimballKristen Hey lady! I like that term “legacy caretaker.” #lcsm |
| #LCSM Chat @lcsmchat @RedGia @JFreemanDaily Great to “see” you! You may want to take the privacy setting off for the chat. #lcsm |
| Laronica Conway @louisianagirl91 @JFreemanDaily @lcsmchat As a family member, I guess we unwittingly become “advocates” during some of those early onc appts, asking the questions our loved ones are unsure about. #lcsm |
| @DavidCookeMD A1 #Cancer advocacy is a big tent. All stakeholders. Patients, family, friends care providers, practitioners, researchers, etc... As long as pushing for evidenced based care, access, equity, resources. #LCSM | |
| Upstage Lung Cancer @UpstageLungCanc #lcsm T1: for us, it's all about doing our best to raise funds for research. We were founded by a performing artist and LC survivor, and she believes in turning to the skillsets we already have in order to fundraise. Harnessing skillsets is a big part of advocacy. |
 | Dana Quinn @Dana1696 @lcsmchat @RedGia @JFreemanDaily Hi 👋 #lcsm |
| @jmeberth T1: To me, cancer advocacy is using a platform to raise issues of inequity in cancer care, amplify survivors voices and needs, and cause a ruckus when one needs to be made! #LCSM I often find my message is similar no matter the cancer I’m being interviewed about... | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @louisianagirl91: @JFreemanDaily @lcsmchat As a family member, I guess we unwittingly become “advocates” during some of those early onc… |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @JFreemanDaily @lcsmchat As a family member, I guess we unwittingly become “advocates” during some of those early onc… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: A1 #Cancer advocacy is a big tent. All stakeholders. Patients, family, friends care providers, practitioners, researche… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @UpstageLungCanc: #lcsm T1: for us, it's all about doing our best to raise funds for research. We were founded by a performing artist an… |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A1 #Cancer advocacy is a big tent. All stakeholders. Patients, family, friends care providers, practitioners, researche… |
| #LCSM Chat @lcsmchat RT @UpstageLungCanc: #lcsm T1: for us, it's all about doing our best to raise funds for research. We were founded by a performing artist an… |
| Danielle Pardue @Actorielle RT @louisianagirl91: @JFreemanDaily @lcsmchat As a family member, I guess we unwittingly become “advocates” during some of those early onc… |
| Dave Bjork @bjork5 @JFreemanDaily T1 For me it’s advocating for #research funding for all cancers, but with a priority for lung cancer. Advocating for me is sharing stories of dedicated scientists doing good work #lcsm |
| Jill Feldman @jillfeldman4 T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education the role can go anywhere from fundraising to policy to research #LCSM |
| #LCSM Chat @lcsmchat @Dana1696 @RedGia @JFreemanDaily Hey Dana! #lcsm |
| #LCSM Chat @lcsmchat RT @jmeberth: T1: To me, cancer advocacy is using a platform to raise issues of inequity in cancer care, amplify survivors voices and needs… |
| #LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T1 For me it’s advocating for #research funding for all cancers, but with a priority for lung cancer. Advocating… |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jmeberth: T1: To me, cancer advocacy is using a platform to raise issues of inequity in cancer care, amplify survivors voices and needs… |
| @aepriceny @JFreemanDaily @lcsmchat Hi everyone not good at this love the topic @aepricny had to fight for a biopsy. Was asked to wait “to let my tumor grow” | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @bjork5: @JFreemanDaily T1 For me it’s advocating for #research funding for all cancers, but with a priority for lung cancer. Advocating… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education… |
| Laronica Conway @louisianagirl91 RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education… |
| #LCSM Chat @lcsmchat @aepriceny Feel free to join in. Make sure to include the hashtag #LCSM to your tweets in order to participate. #lcsm |
 | Sabin Motwani @sabinbmotwanimd T1: Advocacy should be personal (but not necessarily only for yourself), because one should be passionate about what they want to advocate for. I'm a big believer of advocating for what the patient wants, not necessarily the MDs. #lcsm |
| Laronica Conway @louisianagirl91 @jillfeldman4 So true about evolving over time. There isn’t an actual blueprint is there? #lcsm |
| Triage Cancer @TriageCancer #LCSM T1 We like to define advocacy as "the application of pressure and influence on the people and/or institutions that have the power to give you what you want." Different for every stakeholder. Could be legislative, scientific, personal, for others... |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @sabinbmotwanimd: T1: Advocacy should be personal (but not necessarily only for yourself), because one should be passionate about what t… |
| @jmeberth That message is usually 1) we need more $ for prevention, 2) everyone should have insurance, 3) high quality care should not reserved for select few, 4) we need more cancer providers to work in rural America... #LCSM | |
| Laronica Conway @louisianagirl91 RT @sabinbmotwanimd: T1: Advocacy should be personal (but not necessarily only for yourself), because one should be passionate about what t… |
| #LCSM Chat @lcsmchat [REDACTED USER] Hi Kim! Autocorrect changed your hashtag to clam. Happens to us, too. #lcsm |
| Elliot Servais, MD, FACS @ElliotServaisMD T1: I believe advocacy starts with education. Educating yourself about the disease, but more importantly the patient experience. Then educating others #lcsm |
| Danielle Pardue @Actorielle RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @ElliotServaisMD: T1: I believe advocacy starts with education. Educating yourself about the disease, but more importantly the patient e… |
| #LCSM Chat @lcsmchat #lcsm |
| Dave Bjork @bjork5 RT @jillfeldman4: T1 Advocacy can evolve over time. First step for many is telling their story. Depending on time, interests and education… |
| #LCSM Chat @lcsmchat #lcsm |
| @KimballKristen @louisianagirl91 @jillfeldman4 What @jillfeldman4 said - started as advocacy for husband Dave, will continue for my kids (bc we still don’t know why Dave got LC) and for the LC family. Horribly underfunded and misunderstood. Not fair. #LCSM | |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: #lcsm |
| #LCSM Chat @lcsmchat #lcsm |
| Laronica Conway @louisianagirl91 @Dana1696 @JFreemanDaily Yes! Did you feel like you couldn’t DO enough? It’s like, I felt like I needed to make up for lost time and not knowing all the stats...I was almost overwhelmed! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KimballKristen: @louisianagirl91 @jillfeldman4 What @jillfeldman4 said - started as advocacy for husband Dave, will continue for my kid… |
| Janet Freeman-Daily @JFreemanDaily Topic T2 is coming up … #LCSM |
| #LCSM Chat @lcsmchat #lcsm |
| Danielle Pardue @Actorielle #LCSM T1 I ask myself this all the time, bc even several years in, folks still don't understand what I do all day. And that's okay! It's literally my job to explain it better 😂 Started with trying to find best tx for mom. Now, it's mostly dissemination of resources and info. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @lcsmchat: #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @Actorielle: #LCSM T1 I ask myself this all the time, bc even several years in, folks still don't understand what I do all day. And that… |
 | Julia Maués @itsnot_pink Hi #LCSM! So many amazing LC advocates I admire and learn from, I’ll check in today. T1: yes, we all start in advocacy by advocating for ourselves, then helping a friend with our subtype, then learning about others and it keeps expanding |
| Laronica Conway @louisianagirl91 RT @Actorielle: #LCSM T1 I ask myself this all the time, bc even several years in, folks still don't understand what I do all day. And that… |
| Danielle Pardue @Actorielle RT @lcsmchat: #lcsm https://t.co/puTw9xAQqM |
| #LCSM Chat @lcsmchat @itsnot_pink Hey Julia! Thanks for joining. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Pro tip: use #lcsm in all your tweets so others participating in the chat can see them. #LCSM |
| #LCSM Chat @lcsmchat RT @sabinbmotwanimd: T1: Advocacy should be personal (but not necessarily only for yourself), because one should be passionate about what t… |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @jillfeldman4 So true about evolving over time. There isn’t an actual blueprint is there? #lcsm |
| #LCSM Chat @lcsmchat RT @TriageCancer: #LCSM T1 We like to define advocacy as "the application of pressure and influence on the people and/or institutions that… |
| #LCSM Chat @lcsmchat RT @jmeberth: That message is usually 1) we need more $ for prevention, 2) everyone should have insurance, 3) high quality care should not… |
| Austin Peppers, MD @Jalapeno448 @JFreemanDaily T1: Advocacy from my perspective is to 1) be the voice for those who no longer have they're own and 2) be the force standing beside those who have their own and assist in bringing effective and positive change to the world #LCSM |
| #LCSM Chat @lcsmchat RT @KimballKristen: @louisianagirl91 @jillfeldman4 What @jillfeldman4 said - started as advocacy for husband Dave, will continue for my kid… |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @Dana1696 @JFreemanDaily Yes! Did you feel like you couldn’t DO enough? It’s like, I felt like I needed to make up for… |
| #LCSM Chat @lcsmchat RT @Actorielle: #LCSM T1 I ask myself this all the time, bc even several years in, folks still don't understand what I do all day. And that… |
| #LCSM Chat @lcsmchat RT @itsnot_pink: Hi #LCSM! So many amazing LC advocates I admire and learn from, I’ll check in today. T1: yes, we all start in advocacy b… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @Jalapeno448: @JFreemanDaily T1: Advocacy from my perspective is to 1) be the voice for those who no longer have they're own and 2) be t… |
| Laronica Conway @louisianagirl91 @1111linno @lcsmchat Exactly how it happened for my mom. She told people to ask her anything they wanted to know. She wasn’t afraid to talk about because she needed to share what she learned as a patient. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Pro tip: use #lcsm in all your tweets so others participating in the chat can see them. #LCSM |
| Dave Bjork @bjork5 @lcsmchat True Patty, the more we are defined by our mutation it shows the progress we are making in #research! #lcsm |
| #LCSM Chat @lcsmchat RT @Jalapeno448: @JFreemanDaily T1: Advocacy from my perspective is to 1) be the voice for those who no longer have they're own and 2) be t… |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @1111linno @lcsmchat Exactly how it happened for my mom. She told people to ask her anything they wanted to know. She… |
| #LCSM Chat @lcsmchat RT @bjork5: @lcsmchat True Patty, the more we are defined by our mutation it shows the progress we are making in #research! #lcsm |
 | Harpreet Singh, MD @harpreet_md @kRasKickers Hi Terri! So happy to see you here! #LCSM |
| Janet Freeman-Daily @JFreemanDaily T2: What aspect of cancer advocacy is most meaningful for you: self-advocacy, patient navigation, raising awareness, fundraising, co-designing research, increasing access to care, changing policy, other? #LCSM |
| KRASKickers @KRASKickers @harpreet_md Thanks Nice to see you here too! #LCSM |
| Sabin Motwani @sabinbmotwanimd T1 Advocacy is also like running a marathon. Slow and steady will yield far more consistent results, than just sprinting. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T2: What aspect of cancer advocacy is most meaningful for you: self-advocacy, patient navigation, raising awareness, fun… |
| Jill Feldman @jillfeldman4 T1 For me advocacy is standing up for what's right & speak for all those who died, who are living with the disease & yet to be diagnosed. It's up to us to provoke change. #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T2: What aspect of cancer advocacy is most meaningful for you: self-advocacy, patient navigation, raising awareness, fun… |
| Laronica Conway @louisianagirl91 @Dana1696 @JFreemanDaily Right! And both are cancers that you can’t “see” or “feel” so many are completely unaware. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: What aspect of cancer advocacy is most meaningful for you: self-advocacy, patient navigation, raising awareness, fun… |
| #LCSM Chat @lcsmchat RT @sabinbmotwanimd: T1 Advocacy is also like running a marathon. Slow and steady will yield far more consistent results, than just sprint… |
| Laronica Conway @louisianagirl91 @1111linno @lcsmchat I honestly believe it was the teacher in her! 💕 #lcsm |
| KRASKickers @KRASKickers T2 Feeling heard, being part of the solution #LCSM |
| Elliot Servais, MD, FACS @ElliotServaisMD T2: Eliminating stigma. Negative stigmas create obstacles to self-advocacy, screening, and research funding. This comes back to education! #lcsm |
| #LCSM Chat @lcsmchat RT @kRasKickers: T2 Feeling heard, being part of the solution #LCSM |
| Upstage Lung Cancer @UpstageLungCanc T2 We're all about research fundraising, because we believe that's how to move the needle. We've been able to contribute in a significant way to research projects at major institutions (academic and regional), so we've been blessed to see concrete results from our work. #lcsm |
| @KimballKristen T2 At the moment, raising awareness...of the fact anyone can get lung cancer (still such a shock to ppl) and also, for those diagnosed with EGFR (what Dave had and what I know best) encouraging them to get the expert consult, get the best available option for tx #LCSM | |
| Linnea Olson @1111linno #LCSM T1: I abide by the medical maxim, first do no harm. I could not become an advocate until I'd wrestled with my own fear and negativity. I want to keep it real but also to inspire. No one should take aways another's hope. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @1111linno: #LCSM T1: I abide by the medical maxim, first do no harm. I could not become an advocate until I'd wrestled with my own fear… |
| #LCSM Chat @lcsmchat RT @1111linno: #LCSM T1: I abide by the medical maxim, first do no harm. I could not become an advocate until I'd wrestled with my own fear… |
| Dave Bjork @bjork5 @JFreemanDaily T2 Wow Janet so many great thoughtful advocacy roles here! For me it’s the advocating for a change to how researchers get funded...they spend too much time writing grants and fundraising. All the roles you mention are important! #LCSM |
| @aepriceny @lcsmchat When pulmonologist #1 told me I had GGO tumor, and needed a biopsy and #2 it’s in a difficult place and we could “let it grow” for 3 months, there was no more “we”. There was me fighting for a biopsy. In 3 months Covid hit. Advocacy is the ONLY way. #lcsm | |
| #LCSM Chat @lcsmchat #lcsm |
 | Dee Sparacio @womenofteal Hi all Sorry I’m late. #LCSM |
| #LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T2 Wow Janet so many great thoughtful advocacy roles here! For me it’s the advocating for a change to how resear… |
| Danielle Pardue @Actorielle T2 To be totally honest, I feel most accomplished when I am able to introduce someone to new resources or to the advocacy sphere. It's like opening a whole new set of doors for someone in a very vulnerable time. Options for info, options for connection, options for tx. #lcsm |
| Laronica Conway @louisianagirl91 @JFreemanDaily For me it was all about removing the stigma of lung cancer. Many have been ignored because of the stigma and I always felt it was so unfair. So naturally, increasing funding was next because we had a lot of catching up to do. #lcsm |
| @jmeberth T2: The most meaningful part of advocacy to me is changing (or hoping to change) policies that unfairly advantage some patients over others, even if inadvertently. Yet, these can be the hardest to change and can be very frustrating to see policy makers ignore... #LCSM | |
| #LCSM Chat @lcsmchat @womenofteal Thanks for joining! #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: T2 To be totally honest, I feel most accomplished when I am able to introduce someone to new resources or to the advocacy s… |
 | Lurie Cancer Center @LurieCancer RT @JFreemanDaily: Welcome to tonight's #LCSM Chat! Our topic is "Is #Cancer Advocacy for Everyone?" More info on @lcsmchat website https:/… |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @JFreemanDaily For me it was all about removing the stigma of lung cancer. Many have been ignored because of the stigm… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @louisianagirl91: @JFreemanDaily For me it was all about removing the stigma of lung cancer. Many have been ignored because of the stigm… |
| Janet Freeman-Daily @JFreemanDaily We’ll shift to Topic T3 next … #LCSM |
 | Jeff Julian @CoachJeffJulian @JFreemanDaily T2: hi all, long time, my time is limited so I have found sharing my story, aimed at providing hope and inspiration where I can is what has meant most to me. #LCSM |
| #LCSM Chat @lcsmchat RT @CoachJeffJulian: @JFreemanDaily T2: hi all, long time, my time is limited so I have found sharing my story, aimed at providing hope and… |
| Dave Bjork @bjork5 @jillfeldman4 T2 Your voice does make a difference Jill 🙌 #LCSM |
| Jill Feldman @jillfeldman4 T1 Connecting with others will always be the most meaningful. Helping others through the dark scary tunnel of hell & alleviate some anxiety is the best feeling & selfishly helps me because my family didn't have any support 20+ years ago #LCSM |
| #LCSM Chat @lcsmchat Please join us by tweeting #LCSM. I see a number of you quietly watching. #lcsm |
| Laronica Conway @louisianagirl91 @jmeberth Totally agree with this one. Growing up in a rural area, I saw the major discrepancies many faced all because of a zip code. 🤦🏾♀️🤷🏾♀️ Access to care should be equal. #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 Connecting with others will always be the most meaningful. Helping others through the dark scary tunnel of hell & alle… |
| Jill Feldman @jillfeldman4 T2 I do have to say that being a research advocate & seeing how we/patients can change the trajectory of research is pretty damn exciting & meaningful too! #LCSM |
| Austin Peppers, MD @Jalapeno448 T1: As a current lung cancer researcher/advocate and hopeful physican-scientist, I always attempt to walk the crossroads of patient advocacy, lung cancer patient perspectives, and science in my everyday experiments. Although not on the 'front-lines', that is advocacy too! #LCSM |
| Triage Cancer @TriageCancer T2 For us: providing people with practical, important info much sooner after their dx than they usually receive it, so that they can have more control over their lives and have more freedom of choice - crucial after dx when so much freedom and choice feels stolen away. #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 I do have to say that being a research advocate & seeing how we/patients can change the trajectory of research is pret… |
| Dee Sparacio @womenofteal @JFreemanDaily T1 All of the above . Though it started as self-advocacy , progressed to advocating for #ovca and then added advocating for all cancers by being a research advocate and working with my cancer center . #lcsm |
| #LCSM Chat @lcsmchat RT @Jalapeno448: T1: As a current lung cancer researcher/advocate and hopeful physican-scientist, I always attempt to walk the crossroads o… |
| #LCSM Chat @lcsmchat RT @TriageCancer: T2 For us: providing people with practical, important info much sooner after their dx than they usually receive it, so th… |
| Laronica Conway @louisianagirl91 RT @womenofteal: @JFreemanDaily T1 All of the above . Though it started as self-advocacy , progressed to advocating for #ovca and then adde… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @Jalapeno448: T1: As a current lung cancer researcher/advocate and hopeful physican-scientist, I always attempt to walk the crossroads o… |
| Janet Freeman-Daily @JFreemanDaily T3: What discourages you from participating in cancer advocacy? #LCSM |
| Linnea Olson @1111linno #LCSM T2: I think we all discover both our strengths and our weaknesses as well as where our heart is. For me it is medical research and the issues involving clinical trial participation. Access, disparity, the rights of participants. |
| Danielle Pardue @Actorielle @womenofteal @JFreemanDaily Such an honor to chat with you tonight, superstar! <3 |
| @DavidCookeMD A2 Raising awareness on a #cancer problem. I get a lot of "I had no idea!" #LCSM | |
| Danielle Pardue @Actorielle RT @jillfeldman4: T2 I do have to say that being a research advocate & seeing how we/patients can change the trajectory of research is pret… |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A2 Raising awareness on a #cancer problem. I get a lot of "I had no idea!" #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @1111linno: #LCSM T2: I think we all discover both our strengths and our weaknesses as well as where our heart is. For me it is medical… |
| Danielle Pardue @Actorielle This, this, always and forever this! #lcsm |
| Laronica Conway @louisianagirl91 @womenofteal @JFreemanDaily OooOh we totally need to connect!! 🤗 That’s now I got started and now it’s a career!! 💕💕 #lcsm |
| Danielle Pardue @Actorielle RT @jillfeldman4: T1 Connecting with others will always be the most meaningful. Helping others through the dark scary tunnel of hell & alle… |
| Jill Feldman @jillfeldman4 @Jalapeno448 You were an incredible advocate when your mom was alive and you are an incredible advocate now - your mom would be so proud of you @Jalapeno448! #LCSM |
| Laronica Conway @louisianagirl91 RT @Jalapeno448: T1: As a current lung cancer researcher/advocate and hopeful physican-scientist, I always attempt to walk the crossroads o… |
| @DavidCookeMD A3 Nothing really. Not even the online trolls. #LCSM | |
| Laronica Conway @louisianagirl91 RT @jillfeldman4: T2 I do have to say that being a research advocate & seeing how we/patients can change the trajectory of research is pret… |
| Dave Bjork @bjork5 This! 👇 #lcsm #research #patientvoice |
| #LCSM Chat @lcsmchat RT @jillfeldman4: @Jalapeno448 You were an incredible advocate when your mom was alive and you are an incredible advocate now - your mom wo… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: A3 Nothing really. Not even the online trolls. #LCSM |
| Austin Peppers, MD @Jalapeno448 @JFreemanDaily T2: Shoot, they are all so meaningful! Raising awareness, changing policy, and increasing access to care are up there for me. #LCSM |
| Laronica Conway @louisianagirl91 @jillfeldman4 🙌🏾 Yes you are such a role model for others...patients and family members. #lcsm |
| #LCSM Chat @lcsmchat RT @Jalapeno448: @JFreemanDaily T2: Shoot, they are all so meaningful! Raising awareness, changing policy, and increasing access to care ar… |
| Linnea Olson @1111linno #LCSM T2: I hope to inspire others not only to participate in clinical trials, but also to not be complacent. There is an inherent loss of autonomy when one moves from patient to participant. But we can push that envelope (and I have). |
| Elliot Servais, MD, FACS @ElliotServaisMD RT @1111linno: #LCSM T2: I hope to inspire others not only to participate in clinical trials, but also to not be complacent. There is an in… |
| Jill Feldman @jillfeldman4 T3 I have to be honest, as someone who was trying to advocate for lc starting 20 years ago when it was difficult to get someone to care, there's not much that discourages me now except stupid side effects of treatment...and the often too slow process #LCSM |
| #LCSM Chat @lcsmchat RT @1111linno: #LCSM T2: I hope to inspire others not only to participate in clinical trials, but also to not be complacent. There is an in… |
| Danielle Pardue @Actorielle RT @1111linno: #LCSM T2: I think we all discover both our strengths and our weaknesses as well as where our heart is. For me it is medical… |
| Laronica Conway @louisianagirl91 @1111linno You TOTALLY need to write a book!! You ARE gonna to write a book aren’t you?! 🤗 #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T3: What discourages you from participating in cancer advocacy? #LCSM |
| Danielle Pardue @Actorielle RT @1111linno: #LCSM T2: I hope to inspire others not only to participate in clinical trials, but also to not be complacent. There is an in… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Sometimes folks think that, being only one voice, their words are not heard. But one person advocating for #lungcancer patients can do wonders. Just look at some of the folks here tonight. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @1111linno: #LCSM T2: I hope to inspire others not only to participate in clinical trials, but also to not be complacent. There is an in… |
| Linnea Olson @1111linno #LCSM T2: It is my dependance upon and love for clinical research that drives my criticism of the process. Old paradigms are no longer valid. Patients/participants should be real partners. That is a win/win concept. |
| Laronica Conway @louisianagirl91 @jillfeldman4 I never thought I’d say this, but thank God for these social media platforms! They really can be used for good! 🤗 #lcsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Sometimes folks think that, being only one voice, their words are not heard. But one person advocating for #lungcancer pa… |
| Dee Sparacio @womenofteal T2 Most rewarding for me is research advocacy and working with my cancer center on cancer equity. #LCSM |
| #LCSM Chat @lcsmchat RT @1111linno: #LCSM T2: It is my dependance upon and love for clinical research that drives my criticism of the process. Old paradigms are… |
| #LCSM Chat @lcsmchat RT @womenofteal: T2 Most rewarding for me is research advocacy and working with my cancer center on cancer equity. #LCSM |
| Danielle Pardue @Actorielle T3 Disparaging conversations. Recently had one with a prominent citizen of my town. He opined that folks putting themselves at risk for LC (we all know what he meant) had no right to worry about catching covid. Then, he didn't care when I called him out. Cruel. Shook me. #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: T3 Disparaging conversations. Recently had one with a prominent citizen of my town. He opined that folks putting themselves… |
| Jill Feldman @jillfeldman4 T3 I am more encouraged from the army of advocates we have built & the dedicated, passionate scientists, physicians, organizations, etc. It's so inspiring! I will say again though, the pace of change and progress is beyond frustrating & the most discouraging #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T3 I am more encouraged from the army of advocates we have built & the dedicated, passionate scientists, physicians, orga… |
| Elliot Servais, MD, FACS @ElliotServaisMD I was a social media Naysayer for the longest time...I have completely come around! #LCSM |
| Dave Bjork @bjork5 @JFreemanDaily T3 at first I felt cautious because I’m not a scientist so didn’t want say something that would be wrong, but now I just share what I think is good research and let the scientists explain it #LCSM |
| Deb 🌅 @debsmithbeach @JFreemanDaily Sometimes, no oomph. #LCSM |
| Austin Peppers, MD @Jalapeno448 @JFreemanDaily T3: Agree with others. It is quite difficult when the progress we have made is simply not enough. But, we must keep pushing and someday we will make lung cancer a chronic disease that no longer takes our loved ones away. #LCSM |
| Janet Freeman-Daily @JFreemanDaily Topic T4 is coming up … #LCSM |
| #LCSM Chat @lcsmchat T3: Losing rockstar advocates and friends. I do my best to rebound and continue. Deana #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 I am more encouraged from the army of advocates we have built & the dedicated, passionate scientists, physicians, orga… |
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| yetAnotherName @glostaMAssachu T3. I am terribly discouraged by the horrible shadow of politics on science and health care. #LCSM |
| KRASKickers @KRASKickers Cruel & Inappropriate #LCSM |
| Laronica Conway @louisianagirl91 @JFreemanDaily Ugh. Hitting those invisible brick walls and convincing people why what we want/need to do is IMPORTANT and NECESSARY. The mounds of red tape and bureaucracy! 😡 #lcsm |
| @aepriceny @JFreemanDaily @lcsmchat T2-being new have done some fund raising, realize I will alway advocate for myself, there are no stupid questions, I hate the word karma now. Taking time to heal then will see.#LCSM | |
| Jill Feldman @jillfeldman4 RT @wildwestannie: T3. I am terribly discouraged by the horrible shadow of politics on science and health care. #LCSM |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @JFreemanDaily Ugh. Hitting those invisible brick walls and convincing people why what we want/need to do is IMPORTANT… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD We must work to shape #lungcancer policy. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T4: How does one juggle cancer advocacy with the other roles in life? What factors do you consider when deciding how much time to spend on it? #LCSM |
| Dave Bjork @bjork5 This! 👇and now with #Covid_19 even more disruption of old paradigms in #clinicaltrials #LCSM |
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| #LCSM Chat @lcsmchat RT @TimAllenMDJD: We must work to shape #lungcancer policy. #LCSM |
| #LCSM Chat @lcsmchat RT @bjork5: This! 👇and now with #Covid_19 even more disruption of old paradigms in #clinicaltrials #LCSM |
| Linnea Olson @1111linno #LCSM T3: I only get discouraged per advocacy when I myself am feeling hopeless. Balancing optimism with stage IV lung cancer is at best a dicey proposition and at times, I feel it is all I can do to hold my own shit together. |
| Danielle Pardue @Actorielle RT @jillfeldman4: T3 I am more encouraged from the army of advocates we have built & the dedicated, passionate scientists, physicians, orga… |
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| #LCSM Chat @lcsmchat RT @1111linno: #LCSM T3: I only get discouraged per advocacy when I myself am feeling hopeless. Balancing optimism with stage IV lung cance… |
| Danielle Pardue @Actorielle RT @1111linno: #LCSM T3: I only get discouraged per advocacy when I myself am feeling hopeless. Balancing optimism with stage IV lung cance… |
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 | Eden Lake @EdenLake Super late to chat... lots going on. Still wanted to be here. #lcsm |
| #LCSM Chat @lcsmchat @EdenLake Hi Eden. I’m so sorry for your loss. xo #lcsm |
| Danielle Pardue @Actorielle T4 It's my whole life. No reason to equivocate. I'm a full-time caregiver, everything else on hold, so helping others get through where we've been has given a direction and purpose to the hours when I'm not helping my folks. Feels like a super-expertise: 24/7 practice. #lcsm |
| Eden Lake @EdenLake @1111linno Agreed. Too one sided for too long. Lack of a 'shared' approach discouraged me from one trial I qualified for. #lcsm |
| Sabin Motwani @sabinbmotwanimd T3 The tough part of cancer advocacy sometimes is believing in something so strongly, but sometimes not knowing if others will support you or believe in something as strongly as you. #lcsm |
| Laronica Conway @louisianagirl91 RT @1111linno: #LCSM T2: It is my dependance upon and love for clinical research that drives my criticism of the process. Old paradigms are… |
| #LCSM Chat @lcsmchat RT @sabinbmotwanimd: T3 The tough part of cancer advocacy sometimes is believing in something so strongly, but sometimes not knowing if ot… |
| Janet Freeman-Daily @JFreemanDaily When choosing what advocacy project to tackle/accept, I ask myself "How much will it move the needle?" I can't do everything, so I try to be as impactful as possible. #LCSM |
| @KimballKristen T4: still working full-time, helping with grandkids (and grateful for opportunity, and knowing Dave would do better...) and wary of taking on what I can’t promise to properly complete. Maybe too wary. #lcsm | |
| Austin Peppers, MD @Jalapeno448 @JFreemanDaily T3: Oh, and once I was told by a supervisor at American Cancer Society through my Undergrad that my idea to raise awareness about radon exposure and lung cancer was "okay, but should be focused on tobacco." That was pretty discouraging. |
| Austin Peppers, MD @Jalapeno448 @JFreemanDaily #LCSM |
| Laronica Conway @louisianagirl91 RT @bjork5: This! 👇and now with #Covid_19 even more disruption of old paradigms in #clinicaltrials #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: When choosing what advocacy project to tackle/accept, I ask myself "How much will it move the needle?" I can't do everyt… |
| #LCSM Chat @lcsmchat RT @KimballKristen: T4: still working full-time, helping with grandkids (and grateful for opportunity, and knowing Dave would do better...)… |
| Linnea Olson @1111linno #LCSM T3: So I'm hoping there is a question coming as to what keeps me going in advocacy...y'all. The silver lining to this shitty diagnosis. |
| Upstage Lung Cancer @UpstageLungCanc T4 We do the best we can. We're all volunteers. But we have to figure that some progress or contribution is better than none <3 #lcsm |
| Dave Bjork @bjork5 @JFreemanDaily T4 another great question. For me it’s balancing my day job in another disease area with being a lung cancer advocate. It is difficult but I just have to find balance. My commitment is always there tho 🙌💯 #LCSM #research |
| #LCSM Chat @lcsmchat Many have had similar experiences with @AmericanCancer #lcsm |
| Janet Freeman-Daily @JFreemanDaily I hate to turn down any #cancer advocacy project, but my health and family have to take priority, even for a full-time advocate. #LCSM |
| Julia Maués @itsnot_pink T2: helping a newly diagnosed person be empowered, ask questions, speak up about their values and preferences is very special. Also, showing a researcher that doesn’t meet patients that their hard work is impacting real lives is one of the most amazing feelings. #lcsm |
| Jill Feldman @jillfeldman4 T4 NO amount of therapy could helped me through my losses or own dx like my advocacy - it allows me to choose the role that lc has in my life. It gives any emotional & physical pain a purpose. #LCSM |
| Deb 🌅 @debsmithbeach RT @1111linno: #LCSM T2: It is my dependance upon and love for clinical research that drives my criticism of the process. Old paradigms are… |
| #LCSM Chat @lcsmchat RT @UpstageLungCanc: T4 We do the best we can. We're all volunteers. But we have to figure that some progress or contribution is better tha… |
| #LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T4 another great question. For me it’s balancing my day job in another disease area with being a lung cancer adv… |
| Jeff Julian @CoachJeffJulian @JFreemanDaily T4: That’s my struggle the most, but the community has always been welcoming, so I just do all I can, when I can. One talk, one advocacy summit, or one phone conversation with a newly diagnosed patient at a time and then seen what I can do next. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I hate to turn down any #cancer advocacy project, but my health and family have to take priority, even for a full-time a… |
| #LCSM Chat @lcsmchat RT @itsnot_pink: T2: helping a newly diagnosed person be empowered, ask questions, speak up about their values and preferences is very spec… |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 NO amount of therapy could helped me through my losses or own dx like my advocacy - it allows me to choose the role th… |
| Jill Feldman @jillfeldman4 T4 But I do take summers off (for the most part) and work at overnight camp for two months...except this summer :( Everyone needs some escape & time to recharge #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 But I do take summers off (for the most part) and work at overnight camp for two months...except this summer :( Every… |
| Janet Freeman-Daily @JFreemanDaily @1111linno Feel free to share silver linings anytime during #LCSM Chat, Linnea! |
| KRASKickers @KRASKickers Precisely @jillfeldman4 #LCSM |
| Danielle Pardue @Actorielle RT @itsnot_pink: T2: helping a newly diagnosed person be empowered, ask questions, speak up about their values and preferences is very spec… |
| Laronica Conway @louisianagirl91 @JFreemanDaily T4: for me it was easy at first because I had already quit working to take care of mom. So the first 2 yrs as an advocate WAS my job, along with volunteering at the cancer center. Once I got full time work, I had to step back. It was painful, but necessary! 😔#lcsm |
| Danielle Pardue @Actorielle RT @lcsmchat: Many have had similar experiences with @AmericanCancer #lcsm https://t.co/mexvbJZZbQ |
| Janet Freeman-Daily @JFreemanDaily Last topic T5 is on the way … #LCSM |
| Dave Bjork @bjork5 @1111linno You are always so honest Linnea and it shines through. Your authenticity and determination are so inspiring to this community ❤️ #lcsm #gratitude #lungcancer |
| Jill Feldman @jillfeldman4 @JFreemanDaily @1111linno You all are the biggest and best silver lining! |
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| Sabin Motwani @sabinbmotwanimd T4. With all things in life...there must be a healthy balance. Be a strong cancer advocate, but don't forget to breathe, smile, eat, explore near and far, laugh, and talk to friends &family. #lcsm |
| Danielle Pardue @Actorielle An excellent way to think about this! #lcsm |
| #LCSM Chat @lcsmchat RT @sabinbmotwanimd: T4. With all things in life...there must be a healthy balance. Be a strong cancer advocate, but don't forget to brea… |
| Janet Freeman-Daily @JFreemanDaily T5: If someone told you they were interested in becoming a cancer advocate, what would you say to them? #LCSM |
| Linnea Olson @1111linno #LCSM T4: At this point, my life is totally cancer centric--unapologetically so. Advocacy/activism, art, my blog, online dating. I am upfront and out there and totally unapologetic. Even my family is totally onboard now--they understand this is important. |
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| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: If someone told you they were interested in becoming a cancer advocate, what would you say to them? #LCSM |
| Dave Bjork @bjork5 @lcsmchat @AmericanCancer Oh that’s so bad. #lcsm |
| Laronica Conway @louisianagirl91 @JFreemanDaily T4 I HAD to find other ways. And I was blessed, lucky, whatever you want to call it, to end up actually working in #radOnc. And to be more hands on helping patients who are going through what mom went through. My passion is now a career! 😚🙌🏾 #lcsm |
| Jill Feldman @jillfeldman4 T4 When deciding what advocacy I do I think about whether or not I would provide value AND always if there is someone else who could and/or would be better. #LCSM |
| Dana Quinn @Dana1696 @JFreemanDaily T4-I vowed to never stop fighting on behalf of my parents & I try to do all I can for both the lung & pancreatic cancer communities. They deserved better than to die just months from their diagnosis & I don’t want other daughters to watch their parents suffer as I did mine. #lcsm |
 | Gina @EAustin1969 @JFreemanDaily T2: I know I’m lagging, I have to say being able to help someone thru the maze of resources has been gratifying. Increasing access to care by knowing the options has been helpful. |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @JFreemanDaily T4 I HAD to find other ways. And I was blessed, lucky, whatever you want to call it, to end up actually… |
| Danielle Pardue @Actorielle T4 let's face it: it's difficult/impossible for a full-time caregiver to take "time off" in any real capacity, so asking us how much time we devote to advocacy will usually result in us saying that we don't stop. Can't stop. Secret: most of us wouldn't even if we could. <3 #lcsm |
| Laronica Conway @louisianagirl91 @debsmithbeach Deb!!! Heeeyyy!! 💕💕👋🏾👋🏾 #lcsm |
| #LCSM Chat @lcsmchat RT @Dana1696: @JFreemanDaily T4-I vowed to never stop fighting on behalf of my parents & I try to do all I can for both the lung & pancreat… |
| KRASKickers @KRASKickers T5 Each person has their own definition - what does this mean to you? #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T4 let's face it: it's difficult/impossible for a full-time caregiver to take "time off" in any real capacity, so asking us… |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T5: If someone told you they were interested in becoming a cancer advocate, what would you say to them? #LCSM |
| Julia Maués @itsnot_pink T3 I wouldn’t say I’m discouraged by it, but sometimes I need a break after tough losses. The friendships haven’t been long, but they have been deep. Plus, losing someone who has your same disease adds the reminder of your own mortality. Hard, hard stuff #lcsm |
| Gina @EAustin1969 T5: do it but use your strengths #lcsm |
| #LCSM Chat @lcsmchat RT @itsnot_pink: T3 I wouldn’t say I’m discouraged by it, but sometimes I need a break after tough losses. The friendships haven’t been lon… |
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| #LCSM Chat @lcsmchat RT @EAustin1969: T5: do it but use your strengths #lcsm |
| Elliot Servais, MD, FACS @ElliotServaisMD T5: I would tell them to connect with all the advocates on LCSM. I’m inspired by the commitment, passion, and honesty of everyone here. #lcsm |
| @DavidCookeMD A5 Get your ass to #LCSM! https://t.co/JZjXK4zi7b | |
| Janet Freeman-Daily @JFreemanDaily When someone tells me they want to be a cancer advocate, I ask them "Which of your skills gives you the most joy?" Advocacy is a marathon. You have to enjoy what you're doing or you can't stick with it. #LCSM |
| Jill Feldman @jillfeldman4 T5 Do what works for you & interests you. Start slow & it will evolve naturally. Advocacy needs to benefit you as well. It should be energizing, not depleting! #LCSM |
 | Paria Hassouri, MD. She/Her. @pariahassouri Today, ava_dadvand and I stopped by @booksoup to sign the copies of my memoir that they have ordered for their store. Five days to official book release day, while this may not have been the book signing event I… https://t.co/Iu7PfCvfe6 |
| #LCSM Chat @lcsmchat T5: There are many different ways to be an advocate. Find the way(s) that work for you. Deana #LCSM |
 | Dennis Keim @denniskeim RT @itsnot_pink: T3 I wouldn’t say I’m discouraged by it, but sometimes I need a break after tough losses. The friendships haven’t been lon… |
| @DavidCookeMD RT @ElliotServaisMD: T5: I would tell them to connect with all the advocates on LCSM. I’m inspired by the commitment, passion, and honesty… | |
| #LCSM Chat @lcsmchat RT @ElliotServaisMD: T5: I would tell them to connect with all the advocates on LCSM. I’m inspired by the commitment, passion, and honesty… |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A5 Get your ass to #LCSM! https://t.co/JZjXK4zi7b |
| Julia Maués @itsnot_pink T4 I have nothing to add to T4. Need to hear solutions because I’m not doing a good job at this 🤣 #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: When someone tells me they want to be a cancer advocate, I ask them "Which of your skills gives you the most joy?" Advoc… |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 Do what works for you & interests you. Start slow & it will evolve naturally. Advocacy needs to benefit you as well. I… |
 | Roozbeh Dadvand @RoozbehDadvand RT @pariahassouri: Today, ava_dadvand and I stopped by @booksoup to sign the copies of my memoir that they have ordered for their store. Fi… |
| Austin Peppers, MD @Jalapeno448 T4: Old tweet: "THIS is why I don't mind long nights in the lab. My mom will never get to meet my children, but being part in helping give others those moments is truly a honor." When I am tired, I think of those who are more tired. But, knowing limits is important too. #LCSM |
| #LCSM Chat @lcsmchat RT @Jalapeno448: T4: Old tweet: "THIS is why I don't mind long nights in the lab. My mom will never get to meet my children, but being par… |
| Linnea Olson @1111linno #LCSM T4: When I was first diagnosed with lung cancer it felt like a personal tragedy. With time it has become an opportunity. I was raised in a family where community service was integral and I feel it's safe to say I have found my cause. |
| Jill Feldman @jillfeldman4 RT @Jalapeno448: T4: Old tweet: "THIS is why I don't mind long nights in the lab. My mom will never get to meet my children, but being par… |
| Triage Cancer @TriageCancer T5 We have free resources available to help people find the advocacy role/tasks most suited to them (their preferences, time, skills, etc). We also try and explain different advocacy options, so that they can understand the potential impact. See: https://t.co/Og0G46Vr5I #lcsm |
| Laronica Conway @louisianagirl91 RT @1111linno: #LCSM T4: When I was first diagnosed with lung cancer it felt like a personal tragedy. With time it has become an opportunit… |
| Dave Bjork @bjork5 @JFreemanDaily T5 Janet and Deana you are on 🔥 tonight with great questions! I tell them to be yourself, find your voice, share your story and be consistent. @prlzie #lcsm |
| Gina @EAustin1969 @bjork5 @JFreemanDaily T4: this ones been very hard for me. Between all the insane family medical emergencies ( so many ) for now I’m a resource provider and an ear. Been a Lungitity buddy since my dad died. |
| #LCSM Chat @lcsmchat RT @1111linno: #LCSM T4: When I was first diagnosed with lung cancer it felt like a personal tragedy. With time it has become an opportunit… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD There is a role for #lungcancer advocacy in everyone's life, no matter what one's status - patient, family, doctor, nurse, researcher... All perspectives need to be heard to make a strong advocacy voice. #lcsm |
| Laronica Conway @louisianagirl91 RT @Jalapeno448: T4: Old tweet: "THIS is why I don't mind long nights in the lab. My mom will never get to meet my children, but being par… |
| Danielle Pardue @Actorielle RT @1111linno: #LCSM T4: When I was first diagnosed with lung cancer it felt like a personal tragedy. With time it has become an opportunit… |
| #LCSM Chat @lcsmchat RT @TriageCancer: T5 We have free resources available to help people find the advocacy role/tasks most suited to them (their preferences, t… |
| Danielle Pardue @Actorielle RT @Jalapeno448: T4: Old tweet: "THIS is why I don't mind long nights in the lab. My mom will never get to meet my children, but being par… |
| KRASKickers @KRASKickers Brilliant- #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: When someone tells me they want to be a cancer advocate, I ask them "Which of your skills gives you the most joy?" Advoc… |
| Laronica Conway @louisianagirl91 @Jalapeno448 I like this! 💕#lcsm |
| #LCSM Chat @lcsmchat @bjork5 @JFreemanDaily @prlzie Totally Janet, but thanks for including me. xo #lcsm |
| @DavidCookeMD A5 If a patient asks "Is there a clinical trial for me?" BOOM! They are an advocate. #LCSM | |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: There is a role for #lungcancer advocacy in everyone's life, no matter what one's status - patient, family, doctor, nurs… |
| Julia Maués @itsnot_pink T5: Some organizations have great training. In breast cancer, @LivingBeyondBC has a program called #Hearmyvoice that gives a very broad overview of MBC advocacy (ie, all possible paths). When the person finds what they like, they can start going deeper #lcsm |
| Linnea Olson @1111linno #LCSM T4: I have also learned that showing up is HUGE. Thank you #LCSM for both representing and continuously showing up. You are inspirational and incredible. xoxo |
| Upstage Lung Cancer @UpstageLungCanc Exactly right! This is how our founder chose her path, after learning what she learned from her dx. #lcsm |
| #LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T5 Janet and Deana you are on 🔥 tonight with great questions! I tell them to be yourself, find your voice, share… |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @DavidCookeMD: A5 If a patient asks "Is there a clinical trial for me?" BOOM! They are an advocate. #LCSM |
| Laronica Conway @louisianagirl91 THIS PART!!! 🙌🏾🙌🏾 #lcsm |
| #LCSM Chat @lcsmchat RT @DavidCookeMD: A5 If a patient asks "Is there a clinical trial for me?" BOOM! They are an advocate. #LCSM |
| KRASKickers @KRASKickers @TimAllenMDJD So true! Standing up for yourself, or others is Advocacy! #LCSM |
| @KimballKristen @kRasKickers True! Husband Dave had his own ideas about advocacy. E.g., wrote about his experience w/ LC and clinical trials (e.g., pieces published by Boston’s NPR station, an interview.) Did whatever his onc, Lecia Sequist, MGH, suggested. Gave lecture to grad class in cancer bio. #lcsm | |
| Sabin Motwani @sabinbmotwanimd T5 Listen to what others are advocating for. Is this something you believe in? If so, join them. Don't lose sight of your own voice and what you believe in. It may take time, but remember to enjoy the journey, and embrace the challenges and opportunities. #LCSM |
| Danielle Pardue @Actorielle RT @TimAllenMDJD: There is a role for #lungcancer advocacy in everyone's life, no matter what one's status - patient, family, doctor, nurs… |
| #LCSM Chat @lcsmchat RT @KimballKristen: @kRasKickers True! Husband Dave had his own ideas about advocacy. E.g., wrote about his experience w/ LC and clinical… |
| Danielle Pardue @Actorielle RT @TriageCancer: T5 We have free resources available to help people find the advocacy role/tasks most suited to them (their preferences, t… |
| #LCSM Chat @lcsmchat RT @sabinbmotwanimd: T5 Listen to what others are advocating for. Is this something you believe in? If so, join them. Don't lose sight of… |
| Janet Freeman-Daily @JFreemanDaily We’re in our final minutes - closing thoughts? #LCSM |
| Laronica Conway @louisianagirl91 @JFreemanDaily Be prepared for disappointments, but always remember the purpose and why it’s important to you. 💕💕 #lcsm |
| Danielle Pardue @Actorielle RT @kRasKickers: @TimAllenMDJD So true! Standing up for yourself, or others is Advocacy! #LCSM |
| Dave Bjork @bjork5 @lcsmchat @JFreemanDaily @prlzie Lol 😂 #lcsm |
 | Dr. Maram Museitif @MaramDrPH @JFreemanDaily T4. There’s no time limits in saving lives. It’s a life mission that I have invested in, I do take into account working with the right organization’s/ people that can make a difference in preventing cancer. #lcsm |
| Linnea Olson @1111linno #LCSM T5: I wouldn't discourage them :) LOVE YOU ALL! |
| KRASKickers @KRASKickers It takes ALL of us #LCSM |
 | Hansini Laharwani @HansiniMD RT @TimAllenMDJD: There is a role for #lungcancer advocacy in everyone's life, no matter what one's status - patient, family, doctor, nurs… |
| Danielle Pardue @Actorielle Thank you, #LCSM, as always, for helping so many of us find our way and keep in touch and signal boost each others' work and impact <3 <3 <3 |
| #LCSM Chat @lcsmchat I see so many of you out there watching quietly. Thanks for joining us tonight. Please send us a blank tweet with the #lcsm hashtag so everyone knows you’re here. We’re a friendly bunch. Really. #lcsm |
| Jill Feldman @jillfeldman4 Thank you @JFreemanDaily & @LungCancerFaces for a fantastic discussion! #LCSM |
 | Andrea @BraveBosom Too many in healthcare and the industry take advantage of advocates. I am starting to say no and setting better boundaries. Advocacy is not sustainable and that’s by design. #LCSM |
| #LCSM Chat @lcsmchat RT @MaramMPH: @JFreemanDaily T4. There’s no time limits in saving lives. It’s a life mission that I have invested in, I do take into accoun… |
 | Andrea Borondy Kitts @findlungcancer Some of my patients with advanced disease must choose between two options: an expensive novel therapy with lim... https://t.co/BnfJzODwq0 #lcsm #bcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We’re in our final minutes - closing thoughts? #LCSM |
| Julia Maués @itsnot_pink @JFreemanDaily Thank you, #Lcsm crew, for the broad topic. Nice “hanging out” with you all! |
| Laronica Conway @louisianagirl91 @JFreemanDaily I SOOOO missed y’all! Must find the time to do this more often! Y’all are never far from my heart! Becoming an advocate helped me with my grief. Full stop. 😔☺️💕 #lcsm |
| #LCSM Chat @lcsmchat #lcsm |
| Gina @EAustin1969 Great chat tonight... thank y’all #LCSM |
| Dee Sparacio @womenofteal RT @sabinbmotwanimd: T5 Listen to what others are advocating for. Is this something you believe in? If so, join them. Don't lose sight of… |
| #LCSM Chat @lcsmchat RT @louisianagirl91: @JFreemanDaily I SOOOO missed y’all! Must find the time to do this more often! Y’all are never far from my heart! Beco… |
| Triage Cancer @TriageCancer Thank you so much for hosting, @jfreeman and @lcsmchat! It was a joy to be here. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tonight's #lcsm twitterchat is a strong reminder of the value the #lcsm team provides. It remains a privilege to participate. |
| #LCSM Chat @lcsmchat Love all our cancer peeps! Thanks @JFreemanDaily for this excellent chat. Deana #LCSM |
| Dave Bjork @bjork5 @JFreemanDaily Don’t be afraid to speak up and find your voice. We need all different skills and interests as a community to have an impact and make a difference. Thanks @lcsmchat @JFreemanDaily for a great chat tonight ❤️ #lcsm |
| Janet Freeman-Daily @JFreemanDaily Glad to see familiar Twitter handles as well as new participants in #LCSM Chat tonight! Thanks for joining us to talk about #cancer advocacy. |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Tonight's #lcsm twitterchat is a strong reminder of the value the #lcsm team provides. It remains a privilege to partici… |
| #LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily Don’t be afraid to speak up and find your voice. We need all different skills and interests as a community to ha… |
| @KimballKristen @JFreemanDaily Just thank you. It is comforting to have a place in this advocacy family. <3 to you all. #LCSM | |
| KRASKickers @KRASKickers @lcsmchat @JFreemanDaily Thanks ALL #LCSM |
| Upstage Lung Cancer @UpstageLungCanc Thank you for the fantastic, enlightening, educational, inspirational chat (as always) #lcsm! @JFreemanDaily @LungCancerFaces @lcsmchat |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Glad to see familiar Twitter handles as well as new participants in #LCSM Chat tonight! Thanks for joining us to talk a… |
| Jill Feldman @jillfeldman4 @DavidCookeMD Absolutely the first step in advocacy! |
| Dennis Keim @denniskeim RT @JFreemanDaily: When someone tells me they want to be a cancer advocate, I ask them "Which of your skills gives you the most joy?" Advoc… |
| @Pattybeatslungc @JFreemanDaily #LCSM | |
| Dr. Maram Museitif @MaramDrPH @JFreemanDaily [REDACTED USER] 💯%!!! If you have no passion you will never succeed in your mission. #lcsm |
| Dee Sparacio @womenofteal T5 We advocates can learn from each other . And work together to support each other as we support cancer patients/ survivors. #lcsm |
| Janet Freeman-Daily @JFreemanDaily #LCSM |
| Jill Feldman @jillfeldman4 @KimballKristen @JFreemanDaily Always so happy to see you @KimballKristen! |
| @vickielynntyler 📷 #chiarimalformationawareness #chiariawareness2020 #chiarimalformation #chiari #september #purple https://t.co/5pMXla7yCN https://t.co/pZpdPduNoN | |
| Dee Sparacio @womenofteal @louisianagirl91 @JFreemanDaily I feel it is my career too. Even though most of what I do is volunteer. The benefits are many. |
 | The Roland High Life rocks @r0landh1ghl1f3 A sea of empty faces I am swimming through⠀ ⠀ #rockmusic #brooklyn #newyorkcity #lonely #depression #musicians #piano #pianoballads #emo #pianosongs #nooneinbrooklyn #loneliness #rocknroll #rockbands #rockandroll… https://t.co/RCYVW6KMqr |
| Janet Freeman-Daily @JFreemanDaily #LCSM |
| @vickielynntyler #chiarimalformationawareness #chiariawareness2020 #chiarimalformation #chiari #september #purple https://t.co/kNdIKd2qfT | |
| @vickielynntyler 📷 #chiarimalformationawareness #chiariawareness2020 #chiarimalformation #chiari #september #purple https://t.co/VxxTjbuJ8N https://t.co/9dycqH88L1 | |
| Janet Freeman-Daily @JFreemanDaily #LCSM |
| Janet Freeman-Daily @JFreemanDaily #LCSM |
| @vickielynntyler #truth #chiarimalformationawareness #chiariawareness2020 #chiarimalformation #chiari #september #purple https://t.co/0a8tFFX3Lb | |
| @vickielynntyler 📷 #truth #chiarimalformationawareness #chiariawareness2020 #chiarimalformation #chiari #september #purple https://t.co/Kw1rxeZOXA https://t.co/WenCQLiGPO | |
| Janet Freeman-Daily @JFreemanDaily #LCSM |
| Janet Freeman-Daily @JFreemanDaily #LCSM |
| @vickielynntyler #chiarimalformationawareness #chiariawareness2020 #chiarimalformation #chiari #september #purple https://t.co/qkvN6qiNnV | |
| @vickielynntyler 📷 #chiarimalformationawareness #chiariawareness2020 #chiarimalformation #chiari #september #purple https://t.co/Rii6iFTQlf https://t.co/2yieCg0JPv | |
| Dee Sparacio @womenofteal @JFreemanDaily You would think after all these years I would remember to add the hashtag. Lol #lcsm great topic! |
| @vickielynntyler #chiarimalformationawareness #chiariawareness2020 #chiarimalformation #chiari #september #purple https://t.co/YBsvgcm4Ec | |
| @vickielynntyler 📷 #chiarimalformationawareness #chiariawareness2020 #chiarimalformation #chiari #september #purple https://t.co/eonKra4NlI https://t.co/rf1ijErKId | |
| @vickielynntyler 📷 #chiarimalformationawareness #chiariawareness2020 #chiarimalformation #chiari #september #purple https://t.co/2mUILxOIko https://t.co/NsVWVEdIAn |
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