#LDchat Transcript

Healthcare social media transcript of the #LDchat hashtag.
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See #LDchat Influencers/Analytics.

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Understood @UnderstoodOrg
LIVE NOW Welcome to today's #LDchat! This is Cece with the Understood team. Today, we're thrilled to welcome parent and advocate, Kristin Kane (@KristinMatzKane) to discuss how to become an #LD and #ADHD advocate. https://t.co/AA0DJZbxNC
Tina Andrews @TMAndrews2006
RT @UnderstoodOrg: LIVE NOW Welcome to today's #LDchat! This is Cece with the Understood team. Today, we're thrilled to welcome parent and advocate, Kristin Kane (@KristinMatzKane) to discuss how to become an #LD and #ADHD advocate. https://t.co/AA0DJZbxNC
Kristin Kane @KristinMatzKane
Hello!!! Thanks for the opportunity to cohost! #Parent #advocacy is super close to my heart! Looking forward to chatting #ldchat
Jason Dowell Âû @Jgdowell
How do folks get better services for LD when a school doesn’t have staff with in service PL #LDchat
Jenn Osen-Foss @UnderstoodJennO
RT @UnderstoodOrg: LIVE NOW Welcome to today's #LDchat! This is Cece with the Understood team. Today, we're thrilled to welcome parent and advocate, Kristin Kane (@KristinMatzKane) to discuss how to become an #LD and #ADHD advocate. https://t.co/AA0DJZbxNC
Jason Dowell Âû @Jgdowell
RT @KristinMatzKane: Hello!!! Thanks for the opportunity to cohost! #Parent #advocacy is super close to my heart! Looking forward to chatting #ldchat
Understood @UnderstoodOrg
RT @KristinMatzKane: Hello!!! Thanks for the opportunity to cohost! #Parent #advocacy is super close to my heart! Looking forward to chatting #ldchat
Understood @UnderstoodOrg
Who's with us today? #LDchat
Jason Dowell Âû @Jgdowell
#ldchat I’m here
pbest2 @pbest23
@UnderstoodOrg Pippa Best from Ireland! #lDchat
Kristin Kane @KristinMatzKane
Welcome @Jgdowell sometimes advocacy will have to be both for your child and systemic! #ldchat
Jenn Osen-Foss @UnderstoodJennO
Jenn here in Iowa, snowed in AGAIN! #ldchat
Kristin Kane @KristinMatzKane
@UnderstoodJennO Yes here in VA too!! #snowday #ldchat
Kristin Kane @KristinMatzKane
@UnderstoodJennO Yes here in VA too!! #snowday #ldchat
HDubs @holliewood24
Hello! I'm Hollie, an English Teacher from SE PA and a Red Flag Parent with a dyslexic and ADHD child. Looking forward to learning more about ADHD and how I can support my son. #ldchat
Tina Andrews @TMAndrews2006
Here in snowy VA too #ldchat
Elizabeth C. Hamblet @echamblet
#LDchat - snow day makes a good day for a Twitter chat! https://t.co/TQlcSrzJc8
Understood @UnderstoodOrg
Let's get started! We'll use a Q1, Q2… format for questions. Please use the A1, A2… format for answers. Here's the first question… #LDchat
Kristin Kane @KristinMatzKane
@holliewood24 Welcome hollie! #ldchat
Edie Brown @edielovesmath
@UnderstoodOrg Edie, academic therapist from Washington DC. Building an international tribe of teachers and parents of teens and young adults with ADHD. Snowed in, but my house is warm. #LDchat
Kristin Kane @KristinMatzKane
RT @UnderstoodOrg: Let's get started! We'll use a Q1, Q2… format for questions. Please use the A1, A2… format for answers. Here's the first question… #LDchat
Understood @UnderstoodOrg
Q1. How do we get started in becoming an advocate for students with #LD and #ADHD? #LDchat https://t.co/bk1WWu7EJA
Jason Dowell Âû @Jgdowell
RT @UnderstoodOrg: Q1. How do we get started in becoming an advocate for students with #LD and #ADHD? #LDchat https://t.co/bk1WWu7EJA
Kristin Kane @KristinMatzKane
A1 – Easy one - be a parent of a child with #LD or #ADHD!! Lol #ldchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
Hi all, long time no chat! Kerri, ADHD/learning issues diagnosed as an adult. We never get snow days in Winnipeg, I had 2 before grade 3 and then never again. #LDchat
Kristin Kane @KristinMatzKane
A1 – in the practical sense of advocating its time to begin to tell your child’s story. Your experiences with your child are a valuable piece of information when advocating. #ldchat
Lisa Nelson @1in5awareness
Hello. I am Lisa and I am co-founder of Decoding Dyslexia MA. I have quite a bit of experience advocating for my children + helping others. #ldchat #dyslexia #SpecialEducation
Understood @UnderstoodOrg
RT @KristinMatzKane: A1 – Easy one - be a parent of a child with #LD or #ADHD!! Lol #ldchat
Beth Mertens @mertensminute
Excited to join in #ldchat!! Yay for #snowdays, amirite? :) Beth, school counselor and proud #ADHD mom
Understood @UnderstoodOrg
RT @KristinMatzKane: A1 – in the practical sense of advocating its time to begin to tell your child’s story. Your experiences with your child are a valuable piece of information when advocating. #ldchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
A1. Know what the student’s own goals are and what motivates them. No matter how young they are, they need to stay at the centre of the process of getting what THEY need, not what a formula suggests “should” work for them. #LDchat
Kristin Kane @KristinMatzKane
A1 – What I found to be helpful for advocating was preparation, I spent time learning as much as could about #dyslexia #dysgraphia #ADHD #anxiety & #specialed #504 #ldchat
Understood @UnderstoodOrg
Teachers, family members and friends can all be advocates for the students in their lives with #LD and #ADHD. Our @NCLDorg #advocacy training center is a great resource to get started: https://t.co/s0kvkF0050 #LDchat
Jenn Osen-Foss @UnderstoodJennO
A1: Speak up. Even though we want to be nice, we have to stop misinformation and prejudices. #ldchat
pbest2 @pbest23
A1- Getting experience around children with LD & ADHD and learning more about these two disabilities in order to spread awareness. #LDchat
Kristin Kane @KristinMatzKane
@1in5awareness Helllooooo!!! Welcome! #ldchat
HDubs @holliewood24
A1) I was a veteran Inclusion T & thought I knew everything I needed to know about LD. Then I had a child that's LD & realized I knew NOTHING! So now, I advocate advocate & do some more advocating because T's don't know what they don't know. #ldchat
Understood @UnderstoodOrg
Understanding what your student with #LD and #ADHD may be going through is the first step. Read a mom's story about how understanding her child's #dysgraphia helped her be a stronger advocate: https://t.co/pGMh9cuKho #LDchat
Lisa Nelson @1in5awareness
RT @KristinMatzKane: A1 – What I found to be helpful for advocating was preparation, I spent time learning as much as could about #dyslexia #dysgraphia #ADHD #anxiety & #specialed #504 #ldchat
Tina Andrews @TMAndrews2006
And then READ, RESEARCH, LEARN as much as you can about LD #LDchat
Lisa Nelson @1in5awareness
RT @KristinMatzKane: A1 – in the practical sense of advocating its time to begin to tell your child’s story. Your experiences with your child are a valuable piece of information when advocating. #ldchat
Lynn McLaughlin MEd, BEd, BA @lynnmcla
RT @UnderstoodOrg: Q1. How do we get started in becoming an advocate for students with #LD and #ADHD? #LDchat https://t.co/bk1WWu7EJA
Amanda King Shevette @AmandaOKing
A1. Equipping ourselves with facts. #ldchat
Kristin Kane @KristinMatzKane
RT @UnderstoodOrg: Understanding what your student with #LD and #ADHD may be going through is the first step. Read a mom's story about how understanding her child's #dysgraphia helped her be a stronger advocate: https://t.co/pGMh9cuKho #LDchat
Decoding Dyslexia MA @DDyslexiaMA
RT @KristinMatzKane: I will be joining @UnderstoodOrg today at 12 noon to chat about being a parent advocate. RSVP: I will be joining @UnderstoodOrg today at 12 noon to chat about being a parent advocate. RSVP: https://t.co/cYnPXadvHd #LDchat
Understood @UnderstoodOrg
"The most successful advocates, parent advocates, that I've encountered have been persistent but they've also been collaborative." A superintendent shares what he saw in the parents who were the most successful at advocating for their kids. https://t.co/aAgcn9LDPT #LDchat
Kristin Kane @KristinMatzKane
RT @holliewood24: A1) I was a veteran Inclusion T & thought I knew everything I needed to know about LD. Then I had a child that's LD & realized I knew NOTHING! So now, I advocate advocate & do some more advocating because T's don't know what they don't know. #ldchat
Decoding Dyslexia OK @DDOK_official
RT @UnderstoodOrg: Understanding what your student with #LD and #ADHD may be going through is the first step. Read a mom's story about how understanding her child's #dysgraphia helped her be a stronger advocate: https://t.co/pGMh9cuKho #LDchat
Kristin Kane @KristinMatzKane
RT @pbest23: A1- Getting experience around children with LD & ADHD and learning more about these two disabilities in order to spread awareness. #LDchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
A1. Also believe teaching developmentally appropriate self advocacy skills is one of the most important ways adults can advocate for kids. So many adults w/ don’t know how to ask for what they need. It has to start early. #LDchat
Kristin Kane @KristinMatzKane
@pbest23 yes I tried to learn as much as I could #ldchat
Lisa Nelson @1in5awareness
RT @UnderstoodOrg: Q1. How do we get started in becoming an advocate for students with #LD and #ADHD? #LDchat https://t.co/bk1WWu7EJA
Elizabeth C. Hamblet @echamblet
#LDchat a1) I think it's important to get some information from reliable sources - (like Understood!). You should be sure that what you're sharing is correct - I find there's some questionable info out there. Don't want to spread misinformation.
Beth Mertens @mertensminute
Yes!! I am constantly reading and learning. It makes me a better parent and a better professional. @ADDitudeMag and @UnderstoodOrg are my go to sites! #ldchat
Kristin Kane @KristinMatzKane
RT @kerriYWG: A1. Also believe teaching developmentally appropriate self advocacy skills is one of the most important ways adults can advocate for kids. So many adults w/ don’t know how to ask for what they need. It has to start early. #LDchat
Understood @UnderstoodOrg
The second question is coming up… #LDchat
Kristin Kane @KristinMatzKane
RT @UnderstoodOrg: The second question is coming up… #LDchat
Amanda King Shevette @AmandaOKing
A1. The resources of https://t.co/HbRBtnRygr have been INVALUABLE! #ldchat
Understood @UnderstoodOrg
Q2. What can we do outside of school to #advocate for students with #LD and #ADHD? #LDchat https://t.co/SeME2tlLGh
Kristin Kane @KristinMatzKane
RT @mertensminute: Yes!! I am constantly reading and learning. It makes me a better parent and a better professional. @ADDitudeMag and @UnderstoodOrg are my go to sites! #ldchat
Jenn Osen-Foss @UnderstoodJennO
@holliewood24 Parenting and teaching can be so different! I have a recently diagnosed child, and it's been a definite struggle the last 3 years, even though I've been in sped for more than 12. #ldchat
Edie Brown @edielovesmath
@UnderstoodOrg A1. Being in the fields (classroom) is the best way to become an advocate for older kids with ADHD and LD. I taught alone, co-taught, and was a special educator. Content: math, English, reading. Getting to know parents and colleagues are other good ways to begin too. #LDchat
Lisa Nelson @1in5awareness
@UnderstoodOrg To get started in advocating for a child you must learn about the child’s disability, how it impacts him or her and federal + state laws that incl. the child’s rights. #LDChat #dyslexia #dysgraphia #dyscalculia #FAPE #IEP
Kristin Kane @KristinMatzKane
@mertensminute @ADDitudeMag @UnderstoodOrg I also used the state PTI system here in VA @parentcenterhub to learn about the #specialed system #ldchat
Bari Levin @BLevin11
@UnderstoodOrg Wish I could, have math class #ldchat
Kristin Kane @KristinMatzKane
A2 – Another great question. Advocating for systemic change is a great way to help make change for other children and families who may be experiencing similar struggles #ldchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
A2. As an adult undiagnosed until university, my ADHD/LD affects me as much outside the classroom (or workplace) as it does inside of it. Important to realize that we learn everywhere and accommodations may have to be made everywhere, too. #LDchat
Kristin Kane @KristinMatzKane
Yes building relationships with families #ldchat
Kristin Kane @KristinMatzKane
RT @UnderstoodJennO: @holliewood24 Parenting and teaching can be so different! I have a recently diagnosed child, and it's been a definite struggle the last 3 years, even though I've been in sped for more than 12. #ldchat
Understood @UnderstoodOrg
@Arewedoneyet45 So helpful! Make sure to use #LDchat in your tweets so everyone in the chat can see them. Thank you!
Beth Mertens @mertensminute
@echamblet @ADDitudeMag @UnderstoodOrg 100% agree. The parent emails from @ADDitudeMag with quick easily accessible articles on discipline, food, medicine, & strategies have been invaluable to me. #ldchat
Understood @UnderstoodOrg
Outside of your student's school, you can #advocate for policy change and do community outreach. Check out our Action Center to get more information: https://t.co/OGQjgvSP3r #LDchat
Jason Dowell Âû @Jgdowell
A1 #LDchat
Amanda King Shevette @AmandaOKing
A2. Be willing to share our stories #ldchat
Jenn Osen-Foss @UnderstoodJennO
A2: One of the biggest helps I've seen in my own family is awareness and a willingness to talk about learning and attention issues. Through talking, my family has made great strides in the last few decades. #ldchat
Understood @UnderstoodOrg
RT @KristinMatzKane: A2 – Another great question. Advocating for systemic change is a great way to help make change for other children and families who may be experiencing similar struggles #ldchat
Jono 🇺🇦 @Ianatan_Duine
@UnderstoodOrg #ldchat Q2: check for local agencies or community resources that specialize in either adhd or ld. Great opportunity for networking and advocacy. Saves on ‘inventing the wheel again’.
Kristin Kane @KristinMatzKane
A2 – Looking at systemic advocacy boils down to telling your story again. School boards receive public comment or elected officials need to hear from their constituents. #ldchat #drivechange
Lisa Nelson @1in5awareness
A2 To advocate outside of school, you need to put yourself out there both in person and on social media sharing not only your story but quality information to resources that can help others like https://t.co/jHJoVnr86p . #LDchat #Sped #IEP #advocacy
Kristin Kane @KristinMatzKane
RT @UnderstoodOrg: @Arewedoneyet45 So helpful! Make sure to use #LDchat in your tweets so everyone in the chat can see them. Thank you!
Kristin Kane @KristinMatzKane
A2 – A really great way to advocate on a larger level is to raise awareness. Social media!! Share info through #twitter #Facebook #insta . #LDchat
Lisa Nelson @1in5awareness
RT @UnderstoodJennO: A2: A2: One of the biggest helps I've seen in my own family is awareness and a willingness to talk about learning and attention issues. Through talking, my family has made great strides in the last few decades. #ldchat
HDubs @holliewood24
A2) As a T, I have a large PLN that affords me the opportunity to advocate about LD. I'm also involved in some outstanding organizations like @PAECT which let me run a PD workshop about supporting LD S with tech & @PTACVoice which published my esssay on dyslexia. #ldchat
Tina Andrews @TMAndrews2006
A2 talk w people in other student frequented spaces #clubs, #scouts, #sportsteams, #familymembers, #friendshomes, about #LD #LDCHAT
Understood @UnderstoodOrg
RT @KristinMatzKane: A2 – Looking at systemic advocacy boils down to telling your story again. School boards receive public comment or elected officials need to hear from their constituents. #ldchat #drivechange
Angela Lange @angela_lange25
@UnderstoodOrg A2: My goal is to help families know all of their child’s rights when it comes to receiving a positive & successful education #ldchat
Lisa Nelson @1in5awareness
RT @KristinMatzKane: A2 – Another great question. Advocating for systemic change is a great way to help make change for other children and families who may be experiencing similar struggles #ldchat
Understood @UnderstoodOrg
RT @KristinMatzKane: A2 – A really great way to advocate on a larger level is to raise awareness. Social media!! Share info through #twitter #Facebook #insta . #LDchat
Lisa Nelson @1in5awareness
RT @UnderstoodJennO: @holliewood24 Parenting and teaching can be so different! I have a recently diagnosed child, and it's been a definite struggle the last 3 years, even though I've been in sped for more than 12. #ldchat
Kristin Kane @KristinMatzKane
Yes #tweet #post put the info out into the world so others can learn #raiseawareness #dyslexia #LD #AHDH #ldchat
pbest2 @pbest23
Stay updated in your local community or if you have your own son/daughter you could start a group in your local C for support #LDchat
Tiffany Jenkins @tdcraw
A2 share your story with members of your state departments education and legislative members, find your community of support that can help others with your story. #ldchat
Angela Lange @angela_lange25
@UnderstoodOrg A2: using your local library to reach families & hold advocacy information meetings that are free to everyone #ldchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
A2. As well, small or widespread (systemic) issues for people with ADHD/LD can be brought to the attention of your elected representatives. You’re their boss. #LDchat
Kristin Kane @KristinMatzKane
So important #knowyourrights #ldchat
Amanda King Shevette @AmandaOKing
A2. Does https://t.co/HbRBtnRygr have a presentation that could be used to present facts to parent groups, community groups etc? #ldchat
Edie Brown @edielovesmath
@UnderstoodOrg A2. Self-advocacy is critical for teens and young adults with ADHD and LD. Understand IEP, accommodations, and learning preferences to prepare for work, further education. They lead teacher and IEP meetings. #LDchat
Understood @UnderstoodOrg
Let's move onto Q3… #LDchat
Understood @UnderstoodOrg
Q3. How can we encourage others to be advocates? #LDchat https://t.co/jZUfXX7Cqr
Kristin Kane @KristinMatzKane
absolutely! Church too! #ldchat
Lisa Nelson @1in5awareness
RT @KristinMatzKane: Yes #tweet #post put the info out into the world so others can learn #raiseawareness #dyslexia #LD #AHDH #ldchat
Lisa Nelson @1in5awareness
RT @KristinMatzKane: @1in5awareness Helllooooo!!! Welcome! #ldchat
Elizabeth C. Hamblet @echamblet
#LDchat a2) I think it also helps when parents tell others about their student's struggles - I think it helps destigmatize disabilities and lets others know there is a community for them. Of course, you have to be comfortable doing this; not everyone is.
Beth Mertens @mertensminute
A2. Don't forget about coaches, dance teachers and the like! :) Collaborate with them, share the diagnosis and strategies to ensure your child has a successful experience in extra-curricular, too #LDchat
Angela Lange @angela_lange25
@UnderstoodOrg The more empowered families feel our schools will realize they need to step up & create more positive learning environments for all learners #ldchat
Decoding Dyslexia MA @DDyslexiaMA
RT @KristinMatzKane: Cohosting w/ @UnderstoodOrg today at 12 noon. #parent #advocacy is the topic and I know some pretty terrific parents out there doing the work. #ldchat https://t.co/qGDX2F2k3f
Understood @UnderstoodOrg
Talking about what you know or have experienced with family and friends can be a great place to start. Here are tips on how start the conversation about #LD and #ADHD: https://t.co/RgwWdZSBzU #LDchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
While I have not spoken to him about LD/ADHD (outside of #NationalPharmacare discussions), my Member of Parliament and staff have been phenomenal re #advocacy issues I’ve brought. I didn’t expect it, but found a great advocate in him. Impt to ignore party lines here, too. #LDchat
Decoding Dyslexia MA @DDyslexiaMA
RT @KristinMatzKane: A2 – Another great question. Advocating for systemic change is a great way to help make change for other children and families who may be experiencing similar struggles #ldchat
A Rose Pozzi @ARosePozzi
@UnderstoodOrg #ldchat. I kept asking teachers if they thought my kids had #dyslexia No one knew. I finally found an admin at school that knew signs. Then the school wouldn't do anything to help because my child was not doing bad enough. As a atty I had to research the law
Jenn Osen-Foss @UnderstoodJennO
@angela_lange25 @UnderstoodOrg Speaking of libraries, check out any advocacy or support groups that are using their space--you might find some great local advocacy groups that meet there! #ldchat
Tina Andrews @TMAndrews2006
A3 Support them as they get started. Share ideas, go with them at first. #ldchat
Angela Lange @angela_lange25
@UnderstoodOrg A3: knowledge is powerful & creates positive changes! The more schools realize families are equipped with strong but positive advocacy tools the more positive changes we will see #LDchat
Kristin Kane @KristinMatzKane
Hi @echamblet totally agree knowing you are not alone! #soimportant #ldchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
As a coach of athletes with autism/down syndrome/ID, it is HUGELY helpful for coaches when parents share info they have about what helps their athlete. LOVED when a dad brought me his kid’s PT report; sparked us to do more balance activity with all our kids. #LDchat
HDubs @holliewood24
A3) I recently ran a PD segment on advocacy at #PETE2019 for #KTIfamily in which I taught them how to develop their advcocacy/narrative in case they found themselves in a position to deliver a 2 minute elevator pitch to an educational decision maker. #ldchat
Lisa Nelson @1in5awareness
A2 Through my child’s diagnosis of dyslexia, I have found my voice and passionately advocate for dyslexia awareness + providing families with quality resources to information about how to effectively advocate for their child’s needs. #Ldchat
Angela Lange @angela_lange25
@UnderstoodOrg A3: also a community of advocates creates amazing changes too! Knowing others who have had similar challenges can empower each other #ldchat
Jono 🇺🇦 @Ianatan_Duine
Q3 #ldchat I find that parents who have been through the system can be among the strongest advocates. Alliance-building with aware professionals is helpful for coordinating more robust advocating.
Elizabeth C. Hamblet @echamblet
@LLBruni @KristinMatzKane @DDNJ12 #ldchat Absolutely! Great point!
Amanda King Shevette @AmandaOKing
A3. I have found many helpful groups, such as Decoding Dyslexia. State & local chapters help create/support advocates. #ldchat
Jenn Osen-Foss @UnderstoodJennO
@mertensminute This can be difficult, too. A lot of times coaches and extracurricular teachers are students or parents themselves w/ no skill set to work w/ kiddos with differences! You have to speak up and give guidance. #ldchat
Kristin Kane @KristinMatzKane
RT @1in5awareness: A2 Through my child’s diagnosis of dyslexia, I have found my voice and passionately advocate for dyslexia awareness + providing families with quality resources to information about how to effectively advocate for their child’s needs. #Ldchat
Angela Lange @angela_lange25
RT @UnderstoodJennO: @angela_lange25 @UnderstoodOrg Speaking of libraries, check out any advocacy or support groups that are using their space--you might find some great local advocacy groups that meet there! #ldchat
Jason Dowell Âû @Jgdowell
RT @UnderstoodOrg: Talking about what you know or have experienced with family and friends can be a great place to start. Here are tips on how start the conversation about #LD and #ADHD: https://t.co/RgwWdZSBzU #LDchat
Kristin Kane @KristinMatzKane
A3 – I think parents feel more equipped to advocate when we have resources & support. Groups like #decodingdyslexia #chadd or resources like @understood @parentcenterhub can provide both #LDchat
Understood @UnderstoodOrg
Great point! #LDchat
Angela Lange @angela_lange25
RT @KristinMatzKane: A3 – I think parents feel more equipped to advocate when we have resources & support. Groups like #decodingdyslexia #chadd or resources like @understood @parentcenterhub can provide both #LDchat
Understood @UnderstoodOrg
RT @KristinMatzKane: A3 – I think parents feel more equipped to advocate when we have resources & support. Groups like #decodingdyslexia #chadd or resources like @understood @parentcenterhub can provide both #LDchat
Tiffany Jenkins @tdcraw
A3 many need to learn how to advocate, know they don’t have to be the expert on the subject to tell their story. #ldchat
Jason Dowell Âû @Jgdowell
RT @KristinMatzKane: A3 – I think parents feel more equipped to advocate when we have resources & support. Groups like #decodingdyslexia #chadd or resources like @understood @parentcenterhub can provide both #LDchat
Angela Lange @angela_lange25
RT @KristinMatzKane: A2 – Looking at systemic advocacy boils down to telling your story again. School boards receive public comment or elected officials need to hear from their constituents. #ldchat #drivechange
Understood @UnderstoodOrg
Social media, blogs and other tools can be useful in advocating for changes at your school. Download our free out-of-the-box #advocacy guide: https://t.co/XK9z8m5ELo #LDchat
Kristin Kane @KristinMatzKane
A3 – We can support other families by listening, we can encourage them by participating with them. If a parent decides to give public comment stand beside them or stand in support. #LDchat
Joan Moore @Iep504jc
It's great when they can be part of an advocacy day early on, to show the power of one voice multiplied. #ldchat
Jason Dowell Âû @Jgdowell
RT @KristinMatzKane: A3 – We can support other families by listening, we can encourage them by participating with them. If a parent decides to give public comment stand beside them or stand in support. #LDchat
Angela Lange @angela_lange25
RT @UnderstoodOrg: Social media, blogs and other tools can be useful in advocating for changes at your school. Download our free out-of-the-box #advocacy guide: https://t.co/XK9z8m5ELo #LDchat
Understood @UnderstoodOrg
RT @KristinMatzKane: A3 – We can support other families by listening, we can encourage them by participating with them. If a parent decides to give public comment stand beside them or stand in support. #LDchat
pbest2 @pbest23
A3 Spread news about events to do with LD& ADHD. The more aware people are of LD and ADHD, the more likely conversations will start. #LDchat
Beth Mertens @mertensminute
@UnderstoodJennO Absolutely. It makes our advocacy even more important and necessary. #LDchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
A3. Many people want to advocate but they don’t know “how”. Important to help them realize that advocacy is individual and looks different for everyone. #LDchat
Katherine Maier @KatherineMaier3
#LDchat I'm studying Social Media in #EDET543 w/@dianadell. We're learning about Twitter chat. This is my first time participating w/this chat.
Jenn Osen-Foss @UnderstoodJennO
RT @KristinMatzKane: A3 – I think parents feel more equipped to advocate when we have resources & support. Groups like #decodingdyslexia #chadd or resources like @understood @parentcenterhub can provide both #LDchat
Kristin Kane @KristinMatzKane
Exactly! dont have to know everything, we tend to be experts on our kids :) #ldchat
Beth Mertens @mertensminute
RT @UnderstoodOrg: Social media, blogs and other tools can be useful in advocating for changes at your school. Download our free out-of-the-box #advocacy guide: https://t.co/XK9z8m5ELo #LDchat
Lisa Nelson @1in5awareness
And I also helped to make systemic change by helping advocate to pass the first dyslexia law here Massachusetts! https://t.co/WCQfav7lx3 #LDchat #mapoli #bospoli #MAedu #dyslexia #sped
Tina Andrews @TMAndrews2006
A3. Encourage positive conversations and strengths based discussions too. Spread hope not just doom #ldchat
Kristin Kane @KristinMatzKane
RT @Iep504jc: It's great when they can be part of an advocacy day early on, to show the power of one voice multiplied. #ldchat
Understood @UnderstoodOrg
One more question to go… #LDchat
HDubs @holliewood24
@UnderstoodOrg I have a blog: https://t.co/hzTEAHLoWq Publishing this helped me to get my friends and family to understand what our family goes through. Once I got their understanding, I felt empowered to take bigger and more powerful steps. #ldchat
Jason Dowell Âû @Jgdowell
RT @Iep504jc: It's great when they can be part of an advocacy day early on, to show the power of one voice multiplied. #ldchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
A3. It is not all meetings with elected reps (but it can be) or meetings with school boards (but it can be) and it is not yelling at people (never). Many people have dissonance with what advocacy is vs. what they think it is. #LDchat
Kristin Kane @KristinMatzKane
A3 – When advocating at an IEP meeting, families can invite someone who knows the child to attend with them. #LDchat
Understood @UnderstoodOrg
Q4. How can we help students become self-advocates? #LDchat https://t.co/aPcFRkYrLY
Kristin Kane @KristinMatzKane
RT @TMAndrews2006: A3. Encourage positive conversations and strengths based discussions too. Spread hope not just doom #ldchat
Understood @UnderstoodOrg
RT @KristinMatzKane: A3 – When advocating at an IEP meeting, families can invite someone who knows the child to attend with them. #LDchat
Amanda King Shevette @AmandaOKing
A3. I just heard about Diagnose Dyslexia Day...has anyone helped sponsor an event like this? #ldchat
Jason Dowell Âû @Jgdowell
RT @TMAndrews2006: A3. Encourage positive conversations and strengths based discussions too. Spread hope not just doom #ldchat
Kristin Kane @KristinMatzKane
@KatherineMaier3 @dianadell Welcome! #ldchat
Katherine Maier @KatherineMaier3
A1. The best way we can become advocates for our students is to learn more about their individual learning and attention issues; must be personalized according to students. #LDchat
Kristin Kane @KristinMatzKane
A4 - #SelfAdvocates another great topic. Could it’s own #LDchat 😉
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
A4. Ensure students understand their own dx, they already know how their brain works from being inside it, but maybe not why. Help them find (or create) words or pictures to communicate that experience to help others understand. #LDchat
Edie Brown @edielovesmath
@UnderstoodOrg A3. HS and college students with ADHD and LD should start advocacy focusing on strengths. What are your best classes? Who are your favorite teachers? Collaborate on rubrics. Use technology only if it's a strength. #LDchat
Understood @UnderstoodOrg
@KristinMatzKane Absolutely! #LDchat
Kristin Kane @KristinMatzKane
A4 – We decided my son was able to begin attending IEP meetings when he was in 5th grade. He stayed for the first 10 min and shared some thoughts about how things were going. #LDchat
Understood @UnderstoodOrg
RT @KristinMatzKane: A4 – We decided my son was able to begin attending IEP meetings when he was in 5th grade. He stayed for the first 10 min and shared some thoughts about how things were going. #LDchat
Jenn Osen-Foss @UnderstoodJennO
A4: I coach students to advocate for themselves (I'm at the HS level). I let them know I have their back, yet I don't force them into doing something they aren't ready for. #ldchat
Bari Levin @BLevin11
Great answer - there are so many resources now available for parents especially @UnderstoodOrg @LDOnline @E2ENational @DyslexiaIL and for the kids as well. #ldchat #advocate
Understood @UnderstoodOrg
That's great! Thank you for sharing your story. #LDchat
HDubs @holliewood24
A4) I work to develop trusting relationships with my S early in the year, so that I can eventually have open conversations with them about their struggles. In those talks, we discuss how there is no shame in their game and encourage them to be leaders for younger kids. #ldchat
Kristin Kane @KristinMatzKane
A4 – We added a list of his accommodations from his IEP to the front of his folder so he could reference it and share with his teachers. Made sure he #understood ;) #LDchat
Katherine Maier @KatherineMaier3
@UnderstoodOrg A4. We cannot help our students become self-advocates without becoming advocates ourselves as educators. Students must have a comprehensive understanding of their diagnosis. #LDchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
A4. Also, work toward the goal of knowing parent will not always be there to advocate for student (and student will not WANT them to be). If you have a young dx, one day that student may have to meet with a #HigherEd axs team and be able to communicate what they need. #LDchat
Audrey Anderson @Audrey_E_Ander
RT @pbest23: A3 Spread news about events to do with LD& ADHD. The more aware people are of LD and ADHD, the more likely conversations will start. #LDchat
Understood @UnderstoodOrg
Even students who feel uncomfortable speaking up can learn strategies to help them get the help they need. Here are 10 ways to help students self-advocate: https://t.co/sfHGiMiKAG #LDchat
Audrey Anderson @Audrey_E_Ander
RT @UnderstoodOrg: Social media, blogs and other tools can be useful in advocating for changes at your school. Download our free out-of-the-box #advocacy guide: https://t.co/XK9z8m5ELo #LDchat
Kristin Kane @KristinMatzKane
A4 – At the beginning of each year we sit down with all the teachers for about 15 min, my daughter and son share a little bit about their strengths and challenges and what works for them to learn best in the classroom. #LDchat
Audrey Anderson @Audrey_E_Ander
RT @tdcraw: A3 many need to learn how to advocate, know they don’t have to be the expert on the subject to tell their story. #ldchat
Understood @UnderstoodOrg
RT @KristinMatzKane: A4 – We added a list of his accommodations from his IEP to the front of his folder so he could reference it and share with his teachers. Made sure he #understood ;) #LDchat
Audrey Anderson @Audrey_E_Ander
RT @UnderstoodOrg: Great point! #LDchat
Understood @UnderstoodOrg
RT @KristinMatzKane: A4 – At the beginning of each year we sit down with all the teachers for about 15 min, my daughter and son share a little bit about their strengths and challenges and what works for them to learn best in the classroom. #LDchat
Jono 🇺🇦 @Ianatan_Duine
Q4 #LDchat Tough one for many adolescents, especially if they feel like the only ones around them with their experiences. Peer connections with mentors is a good early step.
Audrey Anderson @Audrey_E_Ander
RT @KristinMatzKane: A3 – I think parents feel more equipped to advocate when we have resources & support. Groups like #decodingdyslexia #chadd or resources like @understood @parentcenterhub can provide both #LDchat
Understood @UnderstoodOrg
"What would make it better?" Natalie reflects on the question her parent's asked about her #dyslexia that helped her become a better self-advocate: https://t.co/RQAwOu2ArF #LDchat
Audrey Anderson @Audrey_E_Ander
RT @UnderstoodJennO: @mertensminute This can be difficult, too. A lot of times coaches and extracurricular teachers are students or parents themselves w/ no skill set to work w/ kiddos with differences! You have to speak up and give guidance. #ldchat
Kristin Kane @KristinMatzKane
So many really helpful resources out there! We need to keep sharing! :) #ldchat
SmartKids With LD @smartkidswld
RT @KristinMatzKane: I will be joining @UnderstoodOrg today at 12 noon to chat about being a parent advocate. RSVP: I will be joining @UnderstoodOrg today at 12 noon to chat about being a parent advocate. RSVP: https://t.co/cYnPXadvHd #LDchat
Beth Mertens @mertensminute
RT @UnderstoodOrg: Even students who feel uncomfortable speaking up can learn strategies to help them get the help they need. Here are 10 ways to help students self-advocate: https://t.co/sfHGiMiKAG #LDchat
pbest2 @pbest23
A4 Teach students ideas on how to spread information. E.G. how to set up an information day/ poster / create a video on LD & ADHD. #LDchat
Tina Andrews @TMAndrews2006
A4. a Making sure my son knows all brains are different All have straights / weaknesses & His brain is just right for him. Is key #ldchat
Audrey Anderson @Audrey_E_Ander
RT @Ianatan_Duine: Q3 #ldchat I find that parents who have been through the system can be among the strongest advocates. Alliance-building with aware professionals is helpful for coordinating more robust advocating.
Kristin Kane @KristinMatzKane
<3 this! thank you!! #ldchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
A4. Also establish a way for students to discreetly communicate needs w/ teachers. My university had an intro note for instructors that did not divulge dx but noted what acccoms a student needed in the classroom. Just giving it to prof “broke the ice” + started convo. #LDchat
Audrey Anderson @Audrey_E_Ander
RT @angela_lange25: @UnderstoodOrg A3: @UnderstoodOrg A3: also a community of advocates creates amazing changes too! Knowing others who have had similar challenges can empower each other #ldchat
Katherine Maier @KatherineMaier3
@KristinMatzKane As a new teacher, especially, this would be so beneficial. Are the teachers open to this? Are they able to offer differentiation ideas for your children? #LDchat
Lisa Nelson @1in5awareness
A4 We can help students become better self advocates by informing them of their disability/ skills gaps +their rights and encouraging them to participate in their education including attending and speaking up at IEP meetings #LDchat #SelfDetermination #StudentVoice
Joan Moore @Iep504jc
Have them speak to younger kids, so they can help someone else, any place they will feel empowered. Thanks! #ldchat
Audrey Anderson @Audrey_E_Ander
RT @kerriYWG: As a coach of athletes with autism/down syndrome/ID, it is HUGELY helpful for coaches when parents share info they have about what helps their athlete. LOVED when a dad brought me his kid’s PT report; sparked us to do more balance activity with all our kids. #LDchat
Kristin Kane @KristinMatzKane
There is a great resource here in VA called @IMD_VDOE total focus is on self advocacy! #ldchat
Audrey Anderson @Audrey_E_Ander
RT @mertensminute: A2. Don't forget about coaches, dance teachers and the like! :) Collaborate with them, share the diagnosis and strategies to ensure your child has a successful experience in extra-curricular, too #LDchat
A Rose Pozzi @ARosePozzi
@UnderstoodOrg #ldchat My kids attend every 504 mtg I have w/ the school. As they progress through school their needs have changed. They have input on what accommodations work/do not work. I encourage them to work with their teachers directly 1st if that doesn't work I facilitate resolution
Understood @UnderstoodOrg
Any final thoughts before we wrap up for the week? #LDchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
A4 contd. Younger students may need a way to discreetly let teacher know what is/is not working for them, when they need help. Perhaps a visual trigger for teacher to check in that is more subtle than raising hand constantly. #LDchat
Tina Andrews @TMAndrews2006
A4 b then working on understanding what his brain needs for him to work at his best & feel comfortable / confident asking for it #ldchat
Katherine Maier @KatherineMaier3
RT @UnderstoodOrg: Even students who feel uncomfortable speaking up can learn strategies to help them get the help they need. Here are 10 ways to help students self-advocate: https://t.co/sfHGiMiKAG #LDchat
Kristin Kane @KristinMatzKane
Perfect way to #payitforwad #ldchat
Kristin Kane @KristinMatzKane
RT @1in5awareness: A4 We can help students become better self advocates by informing them of their disability/ skills gaps +their rights and encouraging them to participate in their education including attending and speaking up at IEP meetings #LDchat #SelfDetermination #StudentVoice
Audrey Anderson @Audrey_E_Ander
RT @UnderstoodJennO: @angela_lange25 @UnderstoodOrg Speaking of libraries, check out any advocacy or support groups that are using their space--you might find some great local advocacy groups that meet there! #ldchat
SmartKids With LD @smartkidswld
RT @KristinMatzKane: A3 – I think parents feel more equipped to advocate when we have resources & support. Groups like #decodingdyslexia #chadd or resources like @understood @parentcenterhub can provide both #LDchat
pbest2 @pbest23
Great discussion. I have learnt a lot and really enjoyed this weeks topic. Thanks! #LDchat
Jason Dowell Âû @Jgdowell
@UnderstoodOrg A4 #LDchat encouragement of asking what they need is so important! It’s an important thing to learn in life, not just schooling! All things are a process, and we must learn how to navigate each individual task. Speaking for what we need is so important
Audrey Anderson @Audrey_E_Ander
RT @ARosePozzi: @UnderstoodOrg #ldchat. I kept asking teachers if they thought my kids had #dyslexia No one knew. I finally found an admin at school that knew signs. Then the school wouldn't do anything to help because my child was not doing bad enough. As a atty I had to research the law
Audrey Anderson @Audrey_E_Ander
RT @kerriYWG: While I have not spoken to him about LD/ADHD (outside of #NationalPharmacare discussions), my Member of Parliament and staff have been phenomenal re #advocacy issues I’ve brought. I didn’t expect it, but found a great advocate in him. Impt to ignore party lines here, too. #LDchat
Kristin Kane @KristinMatzKane
over already?!?!?!?! #tooshort #love chatting with everyone!!! #ldchat
Audrey Anderson @Audrey_E_Ander
RT @kerriYWG: A2. As well, small or widespread (systemic) issues for people with ADHD/LD can be brought to the attention of your elected representatives. You’re their boss. #LDchat
Understood @UnderstoodOrg
Thanks for joining today's chat, and a very special thanks to our cohost, @KristinMatzKane! #LDchat
kerri wears a mask 💉🇨🇦💛🇺🇦🦕 @kerriYWG
CT: Ensure advocacy is for student benefit + student centred. Engage them in the process, teach them self advocacy skills as early as possible + build them. Advocacy can be big and small—and small sometimes matters most + has ripple effect. #LDchat
Audrey Anderson @Audrey_E_Ander
RT @UnderstoodOrg: Talking about what you know or have experienced with family and friends can be a great place to start. Here are tips on how start the conversation about #LD and #ADHD: https://t.co/RgwWdZSBzU #LDchat
SmartKids With LD @smartkidswld
RT @1in5awareness: A4 We can help students become better self advocates by informing them of their disability/ skills gaps +their rights and encouraging them to participate in their education including attending and speaking up at IEP meetings #LDchat #SelfDetermination #StudentVoice
Kristin Kane @KristinMatzKane
So glad you joined us!! #ldchat
Katherine Maier @KatherineMaier3
#LDchat - thanks for the great conversation today, this was a great "introduction" for me!
Understood @UnderstoodOrg
RT @KristinMatzKane: over already?!?!?!?! #tooshort #love chatting with everyone!!! #ldchat
Evelyn Polk Green @epgreen
RT @UnderstoodOrg: "The most successful advocates, parent advocates, that I've encountered have been persistent but they've also been collaborative." A superintendent shares what he saw in the parents who were the most successful at advocating for their kids. https://t.co/aAgcn9LDPT #LDchat
Bari Levin @BLevin11
Love this - kids helping their own #learningdifference community. I do this all the time! #ldchat #Empowerment
Understood @UnderstoodOrg
Join #LDchat next week as we discuss how to use empathy to respond to student behavior with writer and educator Kyle Redford, M.A. (@kyleredford). RSVP at https://t.co/nA3ixzIwx2. https://t.co/SoORxSRORo
Kristin Kane @KristinMatzKane
@UnderstoodOrg You all are the best thank you for the invite, humbled by the company and learned from others! a perfect 30 min chat! #ldchat
Understood @UnderstoodOrg
RT @KristinMatzKane: @UnderstoodOrg You all are the best thank you for the invite, humbled by the company and learned from others! a perfect 30 min chat! #ldchat
Kristin Kane @KristinMatzKane
RT @kerriYWG: CT: CT: Ensure advocacy is for student benefit + student centred. Engage them in the process, teach them self advocacy skills as early as possible + build them. Advocacy can be big and small—and small sometimes matters most + has ripple effect. #LDchat
Beth Mertens @mertensminute
So glad I was able to join in today. Thanks for a great chat! #LDchat
Tina Andrews @TMAndrews2006
Love the chats. Wish there were occasional opportunities to talk in depth on these topics! Lile lobby for national Special ed reform #ldchat
Kristin Kane @KristinMatzKane
This is a leadership skill for sure! #ldchat
Katherine Maier @KatherineMaier3
I enjoyed my first Twitter Chat today. #greattopic #studentadvocacy #LDchat #EDET543 #sofast
Audrey Anderson @Audrey_E_Ander
RT @Jgdowell: @UnderstoodOrg A4 #LDchat encouragement of asking what they need is so important! It’s an important thing to learn in life, not just schooling! All things are a process, and we must learn how to navigate each individual task. Speaking for what we need is so important
Audrey Anderson @Audrey_E_Ander
RT @ARosePozzi: @UnderstoodOrg #ldchat My kids attend every 504 mtg I have w/ the school. As they progress through school their needs have changed. They have input on what accommodations work/do not work. I encourage them to work with their teachers directly 1st if that doesn't work I facilitate resolution
Audrey Anderson @Audrey_E_Ander
@KatherineMaier3 @UnderstoodOrg I would think this would be age-appropriate and, as a parent, this takes time to fully understand at end adult level, let alone for a child. #LDChat
Elizabeth C. Hamblet @echamblet
@kerriYWG - I couldn't have said it better! #LDchat
Kristin Kane @KristinMatzKane
Both of my children with #dyslexia were relieved to know. Said it helped them understand what was really going on. #ldchat
Audrey Anderson @Audrey_E_Ander
RT @UnderstoodOrg: Join #LDchat next week as we discuss how to use empathy to respond to student behavior with writer and educator Kyle Redford, M.A. (@kyleredford). RSVP at https://t.co/nA3ixzIwx2. https://t.co/SoORxSRORo
Audrey Anderson @Audrey_E_Ander
RT @Iep504jc: Have them speak to younger kids, so they can help someone else, any place they will feel empowered. Thanks! #ldchat
kristina la cava @kristikreates
RT @BLevin11: Love this - kids helping their own #learningdifference community. I do this all the time! #ldchat #Empowerment
Jason Dowell Âû @Jgdowell
@UnderstoodOrg Happiness comes from within. Never lose your over being misunderstood. Do what you love, and learn everyday #LDchat #Dyslexia #Diversity
Tina Andrews @TMAndrews2006
RT @1in5awareness: A4 We can help students become better self advocates by informing them of their disability/ skills gaps +their rights and encouraging them to participate in their education including attending and speaking up at IEP meetings #LDchat #SelfDetermination #StudentVoice
Tina Andrews @TMAndrews2006
RT @KristinMatzKane: Perfect way to #payitforwad #ldchat
Kristin Kane @KristinMatzKane
@KatherineMaier3 Yes, every year since 6th grade (he's a senior) all his teachers show up and we talk for no more than 20 min unless they want to stay and talk more. It has been so helpful. opens the conversation! #ldchat
Tina Andrews @TMAndrews2006
RT @KristinMatzKane: There is a great resource here in VA called @IMD_VDOE total focus is on self advocacy! #ldchat
Tina Andrews @TMAndrews2006
RT @UnderstoodJennO: A4: A4: I coach students to advocate for themselves (I'm at the HS level). I let them know I have their back, yet I don't force them into doing something they aren't ready for. #ldchat
Tina Andrews @TMAndrews2006
RT @kerriYWG: A1. Also believe teaching developmentally appropriate self advocacy skills is one of the most important ways adults can advocate for kids. So many adults w/ don’t know how to ask for what they need. It has to start early. #LDchat
Tina Andrews @TMAndrews2006
RT @holliewood24: A1) I was a veteran Inclusion T & thought I knew everything I needed to know about LD. Then I had a child that's LD & realized I knew NOTHING! So now, I advocate advocate & do some more advocating because T's don't know what they don't know. #ldchat
Lisa Nelson @1in5awareness
RT @holliewood24: A1) I was a veteran Inclusion T & thought I knew everything I needed to know about LD. Then I had a child that's LD & realized I knew NOTHING! So now, I advocate advocate & do some more advocating because T's don't know what they don't know. #ldchat
SmartKids With LD @smartkidswld
RT @UnderstoodOrg: Understanding what your student with #LD and #ADHD may be going through is the first step. Read a mom's story about how understanding her child's #dysgraphia helped her be a stronger advocate: https://t.co/pGMh9cuKho #LDchat
Kristin Kane @KristinMatzKane
Agree! 💯 percent! #ldchat
Cathy McMillan @DyslexiaBC
RT @KristinMatzKane: A2 – Another great question. Advocating for systemic change is a great way to help make change for other children and families who may be experiencing similar struggles #ldchat
Cathy McMillan @DyslexiaBC
RT @1in5awareness: A2 To advocate outside of school, you need to put yourself out there both in person and on social media sharing not only your story but quality information to resources that can help others like https://t.co/jHJoVnr86p . #LDchat #Sped #IEP #advocacy
Kristin Kane @KristinMatzKane
@smartkidswld Our experience has been favorable. the majority appreciate and are receptive. Biggest benefit is the opportunity for them to hear from my children. #ldchat
SmartKids With LD @smartkidswld
RT @KristinMatzKane: @smartkidswld Our experience has been favorable. the majority appreciate and are receptive. Biggest benefit is the opportunity for them to hear from my children. #ldchat
Angela Lange @angela_lange25
RT @UnderstoodOrg: Teachers, family members and friends can all be advocates for the students in their lives with #LD and #ADHD. Our @NCLDorg #advocacy training center is a great resource to get started: https://t.co/s0kvkF0050 #LDchat
#LDchat content from Twitter.