#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
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See #LupusChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Carly by Nature @SynceNerd_Carli Aye! It's #LupusChat Tiiiiiiiime!!!! Let's Gooooooooo!!!! https://t.co/grUCbJ4sJx |
 | #LupusChat @Lupus_Chat Bienvenido a nuestro primer #LupusChat de 2020! Hoy tendremos un foro abierto donde podrás compartir cualquier pregunta o inquietud. Juntos, proporcionaremos consejos y recursos para ayudarnos mutuamente como comunidad. https://t.co/8Ig77YJKl4 |
| #LupusChat @Lupus_Chat Welcome to our 1st #LupusChat of 2020! Today we will be having an open forum where you may share any questions or concerns. Together, we’ll provide tips and resources to help each other as a community. https://t.co/f1PGqea3Nb |
 | Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Aye! It's #LupusChat Tiiiiiiiime!!!! Let's Gooooooooo!!!! https://t.co/grUCbJ4sJx |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Welcome to our 1st #LupusChat of 2020! Today we will be having an open forum where you may share any questions or concerns. Together, we’ll provide tips and resources to help each other as a community. https://t.co/f1PGqea3Nb |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Welcome to our 1st #LupusChat of 2020! Today we will be having an open forum where you may share any questions or concerns. Together, we’ll provide tips and resources to help each other as a community. https://t.co/f1PGqea3Nb |
 | Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Welcome to our 1st #LupusChat of 2020! Today we will be having an open forum where you may share any questions or concerns. Together, we’ll provide tips and resources to help each other as a community. https://t.co/f1PGqea3Nb |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Bienvenido a nuestro primer #LupusChat de 2020! Hoy tendremos un foro abierto donde podrás compartir cualquier pregunta o inquietud. Juntos, proporcionaremos consejos y recursos para ayudarnos mutuamente como comunidad. https://t.co/8Ig77YJKl4 |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Aye! It's #LupusChat Tiiiiiiiime!!!! Let's Gooooooooo!!!! https://t.co/grUCbJ4sJx |
| #LupusChat @Lupus_Chat Si deseas formular preguntas de forma anónima, por favor siéntase libre de DM y nosotros compartiremos con el #LupusChat comunidad. |
| #LupusChat @Lupus_Chat If you’d like to submit questions anonymously, please feel free to DM us and we will share it with the #LupusChat community. |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Bienvenido a nuestro primer #LupusChat de 2020! Hoy tendremos un foro abierto donde podrás compartir cualquier pregunta o inquietud. Juntos, proporcionaremos consejos y recursos para ayudarnos mutuamente como comunidad. https://t.co/8Ig77YJKl4 |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Is it? Is it?! #LupusChat time?! https://t.co/oMECIOP1nQ |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Si deseas formular preguntas de forma anónima, por favor siéntase libre de DM y nosotros compartiremos con el #LupusChat comunidad. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: If you’d like to submit questions anonymously, please feel free to DM us and we will share it with the #LupusChat community. |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Is it? Is it?! #LupusChat time?! https://t.co/oMECIOP1nQ |
 | Caring For Lupus @CaringForLupus RT @Lupus_Chat: Bienvenido a nuestro primer #LupusChat de 2020! Hoy tendremos un foro abierto donde podrás compartir cualquier pregunta o inquietud. Juntos, proporcionaremos consejos y recursos para ayudarnos mutuamente como comunidad. https://t.co/8Ig77YJKl4 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to our 1st #LupusChat of 2020! Today we will be having an open forum where you may share any questions or concerns. Together, we’ll provide tips and resources to help each other as a community. https://t.co/f1PGqea3Nb |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Welcome to our 1st #LupusChat of 2020! Today we will be having an open forum where you may share any questions or concerns. Together, we’ll provide tips and resources to help each other as a community. https://t.co/f1PGqea3Nb |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Bienvenido a nuestro primer #LupusChat de 2020! Hoy tendremos un foro abierto donde podrás compartir cualquier pregunta o inquietud. Juntos, proporcionaremos consejos y recursos para ayudarnos mutuamente como comunidad. https://t.co/8Ig77YJKl4 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Si deseas formular preguntas de forma anónima, por favor siéntase libre de DM y nosotros compartiremos con el #LupusChat comunidad. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: If you’d like to submit questions anonymously, please feel free to DM us and we will share it with the #LupusChat community. |
| #LupusChat @Lupus_Chat Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| #LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: If you’d like to submit questions anonymously, please feel free to DM us and we will share it with the #LupusChat community. |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
 | RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Welcome to our 1st #LupusChat of 2020! Today we will be having an open forum where you may share any questions or concerns. Together, we’ll provide tips and resources to help each other as a community. https://t.co/f1PGqea3Nb |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: If you’d like to submit questions anonymously, please feel free to DM us and we will share it with the #LupusChat community. |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Carly by Nature @SynceNerd_Carli Just a reminder, it's #LupusChat Sunday. That means for the next hour and change it'll be all #Lupus related content over here. Mute as needed or stick around and learn a lil sumn. The choice is yours. https://t.co/GPIkXhbQSd |
| #LupusChat @Lupus_Chat Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/qIt5mUxVfV |
| #LupusChat @Lupus_Chat Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/HNtETQx48N |
| Carly by Nature @SynceNerd_Carli @Xtel007 #LupusChat https://t.co/TubwAjU5tW |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/qIt5mUxVfV |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/HNtETQx48N |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/HNtETQx48N |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/qIt5mUxVfV |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Just a reminder, it's #LupusChat Sunday. That means for the next hour and change it'll be all #Lupus related content over here. Mute as needed or stick around and learn a lil sumn. The choice is yours. https://t.co/GPIkXhbQSd |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @SynceNerd_Carli Yussssss #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/HNtETQx48N |
| #LupusChat @Lupus_Chat RT @Xtel007: Is it? Is it?! #LupusChat time?! https://t.co/oMECIOP1nQ |
| #LupusChat @Lupus_Chat Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/jQ7ItShAuu |
| #LupusChat @Lupus_Chat Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/lt6R63HVbM |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Just a reminder, it's #LupusChat Sunday. That means for the next hour and change it'll be all #Lupus related content over here. Mute as needed or stick around and learn a lil sumn. The choice is yours. https://t.co/GPIkXhbQSd |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/jQ7ItShAuu |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @SynceNerd_Carli Yussssss #LupusChat |
 | itsmorenamorena @itsmorenamorena RT @Lupus_Chat: 🎉 Today's #LupusChat will be a Community Forum and we want to hear from YOU. Be sure to prepare your questions and concerns so we can share them with the community.📝 Feel free to DM us if that's more comfortable.💻📲 We'll see you at 3PM Eastern Time!! https://t.co/OKrTcGyZCK |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/lt6R63HVbM |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/lt6R63HVbM |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/jQ7ItShAuu |
| #LupusChat @Lupus_Chat Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/idgZHalMHE |
| #LupusChat @Lupus_Chat As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/7WfzO8pVpp |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/7WfzO8pVpp |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/idgZHalMHE |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Just a reminder, it's #LupusChat Sunday. That means for the next hour and change it'll be all #Lupus related content over here. Mute as needed or stick around and learn a lil sumn. The choice is yours. https://t.co/GPIkXhbQSd |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/HNtETQx48N |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/7WfzO8pVpp |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/idgZHalMHE |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/lt6R63HVbM |
| RaquelRoschell @raquelonpurpose New Year. New Decade. New #LupusChat🎊. Let's go! https://t.co/z5fLfkxLiO |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/HNtETQx48N |
| #LupusChat @Lupus_Chat ¡Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es la primera comida que comiste en 2020? https://t.co/xrCBrvQUJK |
| #LupusChat @Lupus_Chat Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is the first food you ate in 2020? https://t.co/rkKQttJrU2 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: New Year. New Decade. New #LupusChat🎊. Let's go! https://t.co/z5fLfkxLiO |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/lt6R63HVbM |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is the first food you ate in 2020? https://t.co/rkKQttJrU2 |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is the first food you ate in 2020? https://t.co/rkKQttJrU2 |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is the first food you ate in 2020? https://t.co/rkKQttJrU2 |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: New Year. New Decade. New #LupusChat🎊. Let's go! https://t.co/z5fLfkxLiO |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: New Year. New Decade. New #LupusChat🎊. Let's go! https://t.co/z5fLfkxLiO |
| Carly by Nature @SynceNerd_Carli @raquelonpurpose Ayeeee!!! 🔥 🔥 #LupusChat |
 | Lvl. 48 And Feeling Great! @Tripping_Crutch RT @raquelonpurpose: New Year. New Decade. New #LupusChat🎊. Let's go! https://t.co/z5fLfkxLiO |
 | You cant fight the good fight if you're dead @sickysummie I'm Summer in Seattle, living with a bonkers autoimmune disease for 14 years. Popcorn started my 2020. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: ¡Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es la primera comida que comiste en 2020? https://t.co/xrCBrvQUJK |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is the first food you ate in 2020? https://t.co/rkKQttJrU2 |
| Caring For Lupus @CaringForLupus Happy New Year!!!!! 🎊🎉💫🌟 Hi.. I'm Elizabeth from NJ and a #LupusChat co-host. My daughter is a Lupus Warrior💪. She was diagnosed with Lupus three years ago. The first thing I had was causa de atun and my husband had white wine. https://t.co/WqKitZDbgv |
| Tiffany ⁷ @TiffanyAndLupus Hello! I’m Tiffany, your #LupusChat co-host from New York City. I’m doing a reading challenge this year, 20 books in 2020. & the first thing I had in the new year was moscato! https://t.co/jtS7pQ9mud |
| Carly by Nature @SynceNerd_Carli RT @sickysummie: I'm Summer in Seattle, living with a bonkers autoimmune disease for 14 years. Popcorn started my 2020. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: I'm Summer in Seattle, living with a bonkers autoimmune disease for 14 years. Popcorn started my 2020. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: Happy New Year!!!!! 🎊🎉💫🌟 Hi.. I'm Elizabeth from NJ and a #LupusChat co-host. My daughter is a Lupus Warrior💪. She was diagnosed with Lupus three years ago. The first thing I had was causa de atun and my husband had white wine. https://t.co/WqKitZDbgv |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. I’m doing a reading challenge this year, 20 books in 2020. & the first thing I had in the new year was moscato! https://t.co/jtS7pQ9mud |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: I'm Summer in Seattle, living with a bonkers autoimmune disease for 14 years. Popcorn started my 2020. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @sickysummie: I'm Summer in Seattle, living with a bonkers autoimmune disease for 14 years. Popcorn started my 2020. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. I’m doing a reading challenge this year, 20 books in 2020. & the first thing I had in the new year was moscato! https://t.co/jtS7pQ9mud |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: Happy New Year!!!!! 🎊🎉💫🌟 Hi.. I'm Elizabeth from NJ and a #LupusChat co-host. My daughter is a Lupus Warrior💪. She was diagnosed with Lupus three years ago. The first thing I had was causa de atun and my husband had white wine. https://t.co/WqKitZDbgv |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: ¡Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es la primera comida que comiste en 2020? https://t.co/xrCBrvQUJK |
| Caring For Lupus @CaringForLupus Feliz año nuevo!!!!! 🎊🎉💫🌟 Hola ... Soy Elizabeth de NJ y coanfitrión de #LupusChat. Mi hija es una guerrera de lupus💪. Le diagnosticaron lupus hace tres años. Lo primero que tuve fue causa de atún y mi esposo vino blanco 🍷. https://t.co/4YA9DUsIs4 |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. I’m doing a reading challenge this year, 20 books in 2020. & the first thing I had in the new year was moscato! https://t.co/jtS7pQ9mud |
| Caring For Lupus @CaringForLupus RT @sickysummie: I'm Summer in Seattle, living with a bonkers autoimmune disease for 14 years. Popcorn started my 2020. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: Feliz año nuevo!!!!! 🎊🎉💫🌟 Hola ... Soy Elizabeth de NJ y coanfitrión de #LupusChat. Mi hija es una guerrera de lupus💪. Le diagnosticaron lupus hace tres años. Lo primero que tuve fue causa de atún y mi esposo vino blanco 🍷. https://t.co/4YA9DUsIs4 |
| RaquelRoschell @raquelonpurpose Hi! Raquel from Texas🙋🏾. I am entrepreneur living with Lupus & Arthritis. First food of 2020🤔. That was so long ago. Rice with zucchini and shrimp I think. #LupusChat |
| itsmorenamorena @itsmorenamorena @Lupus_Chat Hola #LupusChat!! I'm Stephanie, and I live in Atlanta, and I'm handling Lupus, it ain't handling me, and greens, black-eyed peas, sweet potato souffle, and fried chicken was my first meal in 2020! Happy new year to everyone | https://t.co/XpmhLC4hqO |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: Hi! Raquel from Texas🙋🏾. I am entrepreneur living with Lupus & Arthritis. First food of 2020🤔. That was so long ago. Rice with zucchini and shrimp I think. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat Hola #LupusChat!! I'm Stephanie, and I live in Atlanta, and I'm handling Lupus, it ain't handling me, and greens, black-eyed peas, sweet potato souffle, and fried chicken was my first meal in 2020! Happy new year to everyone | https://t.co/XpmhLC4hqO |
 | Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @TiffanyAndLupus: It’s time for the 1st LupusChat of 2020! 🎉 Today's #LupusChat will be a Community Forum and we want to hear from YOU. Be sure to prepare your questions and concerns so we can share them with the community.📝 We'll see you at 3PM Eastern Time on Twi… https://t.co/4Dvfm8Hm8z https://t.co/rJLLP0iUwo |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat Hola #LupusChat!! I'm Stephanie, and I live in Atlanta, and I'm handling Lupus, it ain't handling me, and greens, black-eyed peas, sweet potato souffle, and fried chicken was my first meal in 2020! Happy new year to everyone | https://t.co/XpmhLC4hqO |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is the first food you ate in 2020? https://t.co/rkKQttJrU2 |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/7WfzO8pVpp |
| Friends AgainstLupus @AgainstLupus RT @itsmorenamorena: @Lupus_Chat Hola #LupusChat!! I'm Stephanie, and I live in Atlanta, and I'm handling Lupus, it ain't handling me, and greens, black-eyed peas, sweet potato souffle, and fried chicken was my first meal in 2020! Happy new year to everyone | https://t.co/XpmhLC4hqO |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: ¡Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es la primera comida que comiste en 2020? https://t.co/xrCBrvQUJK |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is the first food you ate in 2020? https://t.co/rkKQttJrU2 |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: Hi! Raquel from Texas🙋🏾. I am entrepreneur living with Lupus & Arthritis. First food of 2020🤔. That was so long ago. Rice with zucchini and shrimp I think. #LupusChat |
| Caring For Lupus @CaringForLupus RT @itsmorenamorena: @Lupus_Chat Hola #LupusChat!! I'm Stephanie, and I live in Atlanta, and I'm handling Lupus, it ain't handling me, and greens, black-eyed peas, sweet potato souffle, and fried chicken was my first meal in 2020! Happy new year to everyone | https://t.co/XpmhLC4hqO |
| Carly by Nature @SynceNerd_Carli Welcome to the first #LupusChat of 2020 y'all! I'm Carly, our resident science nerd, Patient Advocate, and Co-host of @Lupus_Chat. The first thing I ate in 2020 was cheesecake, white cheddar popcorn, and cheddar sun chips. I was snackin, okay?! https://t.co/Lwb0HNlU5N |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: Happy New Year!!!!! 🎊🎉💫🌟 Hi.. I'm Elizabeth from NJ and a #LupusChat co-host. My daughter is a Lupus Warrior💪. She was diagnosed with Lupus three years ago. The first thing I had was causa de atun and my husband had white wine. https://t.co/WqKitZDbgv |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is the first food you ate in 2020? https://t.co/rkKQttJrU2 |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Welcome to the first #LupusChat of 2020 y'all! I'm Carly, our resident science nerd, Patient Advocate, and Co-host of @Lupus_Chat. The first thing I ate in 2020 was cheesecake, white cheddar popcorn, and cheddar sun chips. I was snackin, okay?! https://t.co/Lwb0HNlU5N |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. I’m doing a reading challenge this year, 20 books in 2020. & the first thing I had in the new year was moscato! https://t.co/jtS7pQ9mud |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Welcome to the first #LupusChat of 2020 y'all! I'm Carly, our resident science nerd, Patient Advocate, and Co-host of @Lupus_Chat. The first thing I ate in 2020 was cheesecake, white cheddar popcorn, and cheddar sun chips. I was snackin, okay?! https://t.co/Lwb0HNlU5N |
 | Patty Cake @cupcake0804 RT @raquelonpurpose: Hi! Raquel from Texas🙋🏾. I am entrepreneur living with Lupus & Arthritis. First food of 2020🤔. That was so long ago. Rice with zucchini and shrimp I think. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: Welcome to the first #LupusChat of 2020 y'all! I'm Carly, our resident science nerd, Patient Advocate, and Co-host of @Lupus_Chat. The first thing I ate in 2020 was cheesecake, white cheddar popcorn, and cheddar sun chips. I was snackin, okay?! https://t.co/Lwb0HNlU5N |
| Carly by Nature @SynceNerd_Carli ¡Bienvenidos al primer #LupusChat de 2020! Soy Carly, nuestra amante científica residente, defensora de pacientes y coanfitrión de @Lupus_Chat. Lo primero que comí en 2020 fue tarta de queso, palomitas de maíz cheddar blanco y chips de queso cheddar. Estaba comiendo, ¿de acuerdo? https://t.co/0xkkHrfyQz |
| Patty Cake @cupcake0804 RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/HNtETQx48N |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Hola everyone. Christele here, reporting from my bed. I've had Lupus for 12 years and I'm one of your #LupusChat co-hosts. The first thing I ate was soup joumou, because Haitian. https://t.co/DWOwd0xSg2 |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: ¡Bienvenidos al primer #LupusChat de 2020! Soy Carly, nuestra amante científica residente, defensora de pacientes y coanfitrión de @Lupus_Chat. Lo primero que comí en 2020 fue tarta de queso, palomitas de maíz cheddar blanco y chips de queso cheddar. Estaba comiendo, ¿de acuerdo? https://t.co/0xkkHrfyQz |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @Lupus_Chat Hola #LupusChat!! I'm Stephanie, and I live in Atlanta, and I'm handling Lupus, it ain't handling me, and greens, black-eyed peas, sweet potato souffle, and fried chicken was my first meal in 2020! Happy new year to everyone | https://t.co/XpmhLC4hqO |
| Patty Cake @cupcake0804 RT @Lupus_Chat: Welcome to our 1st #LupusChat of 2020! Today we will be having an open forum where you may share any questions or concerns. Together, we’ll provide tips and resources to help each other as a community. https://t.co/f1PGqea3Nb |
| #LupusChat @Lupus_Chat RT @Xtel007: Hola everyone. Christele here, reporting from my bed. I've had Lupus for 12 years and I'm one of your #LupusChat co-hosts. The first thing I ate was soup joumou, because Haitian. https://t.co/DWOwd0xSg2 |
| itsmorenamorena @itsmorenamorena @SynceNerd_Carli @Lupus_Chat Snacks upon snacks upon snacks! #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: ¡Bienvenidos al primer #LupusChat de 2020! Soy Carly, nuestra amante científica residente, defensora de pacientes y coanfitrión de @Lupus_Chat. Lo primero que comí en 2020 fue tarta de queso, palomitas de maíz cheddar blanco y chips de queso cheddar. Estaba comiendo, ¿de acuerdo? https://t.co/0xkkHrfyQz |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu I’m Tinu, I’m an East coast American born child of Nigerians. I’m exhausted & still in bed. First food of 2020 was jollof rice. #LupusChat |
| Patty Cake @cupcake0804 RT @Lupus_Chat: 🎉 Today's #LupusChat will be a Community Forum and we want to hear from YOU. Be sure to prepare your questions and concerns so we can share them with the community.📝 Feel free to DM us if that's more comfortable.💻📲 We'll see you at 3PM Eastern Time!! https://t.co/OKrTcGyZCK |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: ¡Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es la primera comida que comiste en 2020? https://t.co/xrCBrvQUJK |
| Caring For Lupus @CaringForLupus RT @Tinu: I’m Tinu, I’m an East coast American born child of Nigerians. I’m exhausted & still in bed. First food of 2020 was jollof rice. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Hola everyone. Christele here, reporting from my bed. I've had Lupus for 12 years and I'm one of your #LupusChat co-hosts. The first thing I ate was soup joumou, because Haitian. https://t.co/DWOwd0xSg2 |
| Caring For Lupus @CaringForLupus RT @Xtel007: Hola everyone. Christele here, reporting from my bed. I've had Lupus for 12 years and I'm one of your #LupusChat co-hosts. The first thing I ate was soup joumou, because Haitian. https://t.co/DWOwd0xSg2 |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/7WfzO8pVpp |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: Just a reminder, it's #LupusChat Sunday. That means for the next hour and change it'll be all #Lupus related content over here. Mute as needed or stick around and learn a lil sumn. The choice is yours. https://t.co/GPIkXhbQSd |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/idgZHalMHE |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Welcome to the first #LupusChat of 2020 y'all! I'm Carly, our resident science nerd, Patient Advocate, and Co-host of @Lupus_Chat. The first thing I ate in 2020 was cheesecake, white cheddar popcorn, and cheddar sun chips. I was snackin, okay?! https://t.co/Lwb0HNlU5N |
| #LupusChat @Lupus_Chat RT @Tinu: I’m Tinu, I’m an East coast American born child of Nigerians. I’m exhausted & still in bed. First food of 2020 was jollof rice. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @SynceNerd_Carli: Welcome to the first #LupusChat of 2020 y'all! I'm Carly, our resident science nerd, Patient Advocate, and Co-host of @Lupus_Chat. The first thing I ate in 2020 was cheesecake, white cheddar popcorn, and cheddar sun chips. I was snackin, okay?! https://t.co/Lwb0HNlU5N |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Tinu: I’m Tinu, I’m an East coast American born child of Nigerians. I’m exhausted & still in bed. First food of 2020 was jollof rice. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/lt6R63HVbM |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @SynceNerd_Carli: Welcome to the first #LupusChat of 2020 y'all! I'm Carly, our resident science nerd, Patient Advocate, and Co-host of @Lupus_Chat. The first thing I ate in 2020 was cheesecake, white cheddar popcorn, and cheddar sun chips. I was snackin, okay?! https://t.co/Lwb0HNlU5N |
| #LupusChat @Lupus_Chat Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/UE65iQtkFY |
| #LupusChat @Lupus_Chat Is everyone ready? Here comes Question 1! #LupusChat https://t.co/gHsK2OXV9c |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: Hola everyone. Christele here, reporting from my bed. I've had Lupus for 12 years and I'm one of your #LupusChat co-hosts. The first thing I ate was soup joumou, because Haitian. https://t.co/DWOwd0xSg2 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: Welcome to the first #LupusChat of 2020 y'all! I'm Carly, our resident science nerd, Patient Advocate, and Co-host of @Lupus_Chat. The first thing I ate in 2020 was cheesecake, white cheddar popcorn, and cheddar sun chips. I was snackin, okay?! https://t.co/Lwb0HNlU5N |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @SynceNerd_Carli: ¡Bienvenidos al primer #LupusChat de 2020! Soy Carly, nuestra amante científica residente, defensora de pacientes y coanfitrión de @Lupus_Chat. Lo primero que comí en 2020 fue tarta de queso, palomitas de maíz cheddar blanco y chips de queso cheddar. Estaba comiendo, ¿de acuerdo? https://t.co/0xkkHrfyQz |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Is everyone ready? Here comes Question 1! #LupusChat https://t.co/gHsK2OXV9c |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Is everyone ready? Here comes Question 1! #LupusChat https://t.co/gHsK2OXV9c |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Xtel007: Hola everyone. Christele here, reporting from my bed. I've had Lupus for 12 years and I'm one of your #LupusChat co-hosts. The first thing I ate was soup joumou, because Haitian. https://t.co/DWOwd0xSg2 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @itsmorenamorena: @Lupus_Chat Hola #LupusChat!! I'm Stephanie, and I live in Atlanta, and I'm handling Lupus, it ain't handling me, and greens, black-eyed peas, sweet potato souffle, and fried chicken was my first meal in 2020! Happy new year to everyone | https://t.co/XpmhLC4hqO |
| #LupusChat @Lupus_Chat Q1: Puedes compartir algo nuevo que hayas aprendido sobre vivir con Lupus? #LupusChat https://t.co/EAKDxAHzPA |
| #LupusChat @Lupus_Chat Q1: Can you share something new that you learned about living with Lupus? #LupusChat https://t.co/br56X5fHA3 |
| Carly by Nature @SynceNerd_Carli @itsmorenamorena @Lupus_Chat Stephanieeeee!! Welcome back to #LupusChat. I'm extra hungry now though!! 😩 https://t.co/UpF3JY3zx2 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1: Q1: Can you share something new that you learned about living with Lupus? #LupusChat https://t.co/br56X5fHA3 |
| Carly by Nature @SynceNerd_Carli @raquelonpurpose Welcome back to #LupusChat Raquel! Ima need some of that in a care package please and thank you!! |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: Hi! Raquel from Texas🙋🏾. I am entrepreneur living with Lupus & Arthritis. First food of 2020🤔. That was so long ago. Rice with zucchini and shrimp I think. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Feliz año nuevo!!!!! 🎊🎉💫🌟 Hola ... Soy Elizabeth de NJ y coanfitrión de #LupusChat. Mi hija es una guerrera de lupus💪. Le diagnosticaron lupus hace tres años. Lo primero que tuve fue causa de atún y mi esposo vino blanco 🍷. https://t.co/4YA9DUsIs4 |
 | Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1: Q1: Can you share something new that you learned about living with Lupus? #LupusChat https://t.co/br56X5fHA3 |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. I’m doing a reading challenge this year, 20 books in 2020. & the first thing I had in the new year was moscato! https://t.co/jtS7pQ9mud |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q1: Q1: Can you share something new that you learned about living with Lupus? #LupusChat https://t.co/br56X5fHA3 |
 | Rachel F F@#K LUPUS @FKLUPUS I'm @FKLUPUS From another dimension Proud nerdy, dog mom... The first food I ate in 2020 was soup bc I caught a virus and had a sinus infection😭 #LupusChat https://t.co/snJB1nxC3C |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q1: Q1: Can you share something new that you learned about living with Lupus? #LupusChat https://t.co/br56X5fHA3 |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Happy New Year!!!!! 🎊🎉💫🌟 Hi.. I'm Elizabeth from NJ and a #LupusChat co-host. My daughter is a Lupus Warrior💪. She was diagnosed with Lupus three years ago. The first thing I had was causa de atun and my husband had white wine. https://t.co/WqKitZDbgv |
| Tiffany ⁷ @TiffanyAndLupus A1: I’ve been knowingly living with Lupus for about 10 years now & one thing I’ve learned is that no matter how long one has lived with it, it can still be unpredictable. #LupusChat |
| Carly by Nature @SynceNerd_Carli @sickysummie Welcome back to #LupusChat Summer! I see we both had popcorn for the new year! |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is the first food you ate in 2020? https://t.co/rkKQttJrU2 |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Q1: Q1: Can you share something new that you learned about living with Lupus? #LupusChat https://t.co/br56X5fHA3 |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Q1: Q1: Puedes compartir algo nuevo que hayas aprendido sobre vivir con Lupus? #LupusChat https://t.co/EAKDxAHzPA |
| Carly by Nature @SynceNerd_Carli RT @FKLUPUS: I'm @FKLUPUS From another dimension Proud nerdy, dog mom... The first food I ate in 2020 was soup bc I caught a virus and had a sinus infection😭 #LupusChat https://t.co/snJB1nxC3C |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @FKLUPUS: I'm @FKLUPUS From another dimension Proud nerdy, dog mom... The first food I ate in 2020 was soup bc I caught a virus and had a sinus infection😭 #LupusChat https://t.co/snJB1nxC3C |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @TiffanyAndLupus: A1: A1: I’ve been knowingly living with Lupus for about 10 years now & one thing I’ve learned is that no matter how long one has lived with it, it can still be unpredictable. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. I learned a lot in the past few years about treatments and how they come about. #LupusChat |
| #LupusChat @Lupus_Chat RT @FKLUPUS: I'm @FKLUPUS From another dimension Proud nerdy, dog mom... The first food I ate in 2020 was soup bc I caught a virus and had a sinus infection😭 #LupusChat https://t.co/snJB1nxC3C |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Puedes compartir algo nuevo que hayas aprendido sobre vivir con Lupus? #LupusChat https://t.co/EAKDxAHzPA |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: I’ve been knowingly living with Lupus for about 10 years now & one thing I’ve learned is that no matter how long one has lived with it, it can still be unpredictable. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @CaringForLupus: Happy New Year!!!!! 🎊🎉💫🌟 Hi.. I'm Elizabeth from NJ and a #LupusChat co-host. My daughter is a Lupus Warrior💪. She was diagnosed with Lupus three years ago. The first thing I had was causa de atun and my husband had white wine. https://t.co/WqKitZDbgv |
| Caring For Lupus @CaringForLupus RT @FKLUPUS: I'm @FKLUPUS From another dimension Proud nerdy, dog mom... The first food I ate in 2020 was soup bc I caught a virus and had a sinus infection😭 #LupusChat https://t.co/snJB1nxC3C |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: I’ve been knowingly living with Lupus for about 10 years now & one thing I’ve learned is that no matter how long one has lived with it, it can still be unpredictable. #LupusChat |
| Carly by Nature @SynceNerd_Carli @FKLUPUS Hey heyyyy! Welcome back to #LupusChat! Sorry to hear you got sick but I hope you're a bit better now. Also hope that soup was extra good!! |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1. I learned a lot in the past few years about treatments and how they come about. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1: A1: I’ve been knowingly living with Lupus for about 10 years now & one thing I’ve learned is that no matter how long one has lived with it, it can still be unpredictable. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. I’m doing a reading challenge this year, 20 books in 2020. & the first thing I had in the new year was moscato! https://t.co/jtS7pQ9mud |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. I learned a lot in the past few years about treatments and how they come about. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @raquelonpurpose: Hi! Raquel from Texas🙋🏾. I am entrepreneur living with Lupus & Arthritis. First food of 2020🤔. That was so long ago. Rice with zucchini and shrimp I think. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Is everyone ready? Here comes Question 1! #LupusChat https://t.co/gHsK2OXV9c |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/UE65iQtkFY |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @SynceNerd_Carli @Lupus_Chat Snacks upon snacks upon snacks! #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Ivey Janette,Albuquerque via Los Angeles. Still recovering from a hysterectomy 6 weeks ago. First thing I ate in 2020 was the traditional New Year's chips and onion dip. #LupusChat |
| Caring For Lupus @CaringForLupus 1. As a mom and caregiver I have learned that it is very....very important to listen to your body. #LupusChat |
| Carly by Nature @SynceNerd_Carli @itsmorenamorena @Lupus_Chat #LupusChat https://t.co/IpgBJh8Y1P |
| Carly by Nature @SynceNerd_Carli RT @Tinu: I’m Tinu, I’m an East coast American born child of Nigerians. I’m exhausted & still in bed. First food of 2020 was jollof rice. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. I learned a lot in the past few years about treatments and how they come about. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque via Los Angeles. Still recovering from a hysterectomy 6 weeks ago. First thing I ate in 2020 was the traditional New Year's chips and onion dip. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: 1. As a mom and caregiver I have learned that it is very....very important to listen to your body. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Get lots of rest. #LupusChat |
| Caring For Lupus @CaringForLupus A1. My husband says that since Miah's diagnosis he has learned to cope with all the changes that comes with living with Lupus #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. I learned about the role patients have, both as participants (in clinical trials etc), and also in the design. We know ourselves best, so we know what we want from our treatments and how we want to be cared for. #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A1 : My gastrointestinal symptoms seem to be connected. Symptoms worsen with stress. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q1: Q1: Can you share something new that you learned about living with Lupus? #LupusChat https://t.co/br56X5fHA3 |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A1: A1: I’ve been knowingly living with Lupus for about 10 years now & one thing I’ve learned is that no matter how long one has lived with it, it can still be unpredictable. #LupusChat |
| Carly by Nature @SynceNerd_Carli @Tinu Welcome back to #LupusChat, Tinu! Always great to have you with us. Hope I get to feast on your jollof soon. 😩 |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Hola everyone. Christele here, reporting from my bed. I've had Lupus for 12 years and I'm one of your #LupusChat co-hosts. The first thing I ate was soup joumou, because Haitian. https://t.co/DWOwd0xSg2 |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A1. I learned a lot in the past few years about treatments and how they come about. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @SynceNerd_Carli: @Tinu Welcome back to #LupusChat, Tinu! Always great to have you with us. Hope I get to feast on your jollof soon. 😩 |
| Caring For Lupus @CaringForLupus A1 Miah's dad says that we have learned and we have been getting better at integrating all her appointments to our daily routine. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @CaringForLupus: 1. As a mom and caregiver I have learned that it is very....very important to listen to your body. #LupusChat |
| Carly by Nature @SynceNerd_Carli @Xtel007 Ain't even send me none. Smh #LupusChat https://t.co/lq8CzjTkwU |
| Friends AgainstLupus @AgainstLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque via Los Angeles. Still recovering from a hysterectomy 6 weeks ago. First thing I ate in 2020 was the traditional New Year's chips and onion dip. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1: Q1: Can you share something new that you learned about living with Lupus? #LupusChat https://t.co/br56X5fHA3 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1: Q1: Puedes compartir algo nuevo que hayas aprendido sobre vivir con Lupus? #LupusChat https://t.co/EAKDxAHzPA |
| You cant fight the good fight if you're dead @sickysummie A1: I learned that I'm still me, no matter how much lupus steals. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 Miah's dad says that we have learned and we have been getting better at integrating all her appointments to our daily routine. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : My gastrointestinal symptoms seem to be connected. Symptoms worsen with stress. #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : My gastrointestinal symptoms seem to be connected. Symptoms worsen with stress. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. I learned about the role patients have, both as participants (in clinical trials etc), and also in the design. We know ourselves best, so we know what we want from our treatments and how we want to be cared for. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1. My husband says that since Miah's diagnosis he has learned to cope with all the changes that comes with living with Lupus #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1. I learned about the role patients have, both as participants (in clinical trials etc), and also in the design. We know ourselves best, so we know what we want from our treatments and how we want to be cared for. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat Get lots of rest. #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque via Los Angeles. Still recovering from a hysterectomy 6 weeks ago. First thing I ate in 2020 was the traditional New Year's chips and onion dip. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: 1. As a mom and caregiver I have learned that it is very....very important to listen to your body. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque via Los Angeles. Still recovering from a hysterectomy 6 weeks ago. First thing I ate in 2020 was the traditional New Year's chips and onion dip. #LupusChat |
| Caring For Lupus @CaringForLupus RT @sickysummie: A1: A1: I learned that I'm still me, no matter how much lupus steals. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. I learned about the role patients have, both as participants (in clinical trials etc), and also in the design. We know ourselves best, so we know what we want from our treatments and how we want to be cared for. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1 Miah's dad says that we have learned and we have been getting better at integrating all her appointments to our daily routine. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : My gastrointestinal symptoms seem to be connected. Symptoms worsen with stress. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1. My husband says that since Miah's diagnosis he has learned to cope with all the changes that comes with living with Lupus #LupusChat |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Welcome back to #LupusChat Ivey! I see we both were snacking for the new year! |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Get lots of rest. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. I also learned that, as I learn more about myself and how I respond to things, I'm able to take care of myself better and with more kindness, which in turn helps keep my disease activity at bay. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @sickysummie: A1: A1: I learned that I'm still me, no matter how much lupus steals. #LupusChat |
| #LupusChat @Lupus_Chat Gracias por compartir todo lo que has aprendido sobre Lupus. Cambiemos de marcha para la Pregunta 2 y analicemos lo que está por venir. #LupusChat https://t.co/HMrcwaA336 |
| #LupusChat @Lupus_Chat Thanks for sharing all you’ve learned about Lupus. Let’s switch gears for Question 2 and discuss what’s to come. #LupusChat https://t.co/KMxGOllueD |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. I also learned that, as I learn more about myself and how I respond to things, I'm able to take care of myself better and with more kindness, which in turn helps keep my disease activity at bay. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Gracias por compartir todo lo que has aprendido sobre Lupus. Cambiemos de marcha para la Pregunta 2 y analicemos lo que está por venir. #LupusChat https://t.co/HMrcwaA336 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Thanks for sharing all you’ve learned about Lupus. Let’s switch gears for Question 2 and discuss what’s to come. #LupusChat https://t.co/KMxGOllueD |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. I also learned that, as I learn more about myself and how I respond to things, I'm able to take care of myself better and with more kindness, which in turn helps keep my disease activity at bay. #LupusChat |
| itsmorenamorena @itsmorenamorena @Lupus_Chat A1) Brain fog is not just forgetting things. It also limits concentration and impairs the ability to focus. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: A1: A1: I learned that I'm still me, no matter how much lupus steals. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 That is so important! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @sickysummie: A1: A1: I learned that I'm still me, no matter how much lupus steals. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @FKLUPUS Hey heyyyy! Welcome back to #LupusChat! Sorry to hear you got sick but I hope you're a bit better now. Also hope that soup was extra good!! |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat A1) Brain fog is not just forgetting things. It also limits concentration and impairs the ability to focus. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @SynceNerd_Carli It's in my tummy, Carlene. You didn't see the gif? #LupusChat |
| Carly by Nature @SynceNerd_Carli @sickysummie Aye! That sounds delicious tbh #LupusChat |
 | Topeka Independent Living Resource Center @TopekaILRC #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Thanks for sharing all you’ve learned about Lupus. Let’s switch gears for Question 2 and discuss what’s to come. #LupusChat https://t.co/KMxGOllueD |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A1 Miah's dad says that we have learned and we have been getting better at integrating all her appointments to our daily routine. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. I learned about the role patients have, both as participants (in clinical trials etc), and also in the design. We know ourselves best, so we know what we want from our treatments and how we want to be cared for. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : My gastrointestinal symptoms seem to be connected. Symptoms worsen with stress. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 Miah's dad says that we have learned and we have been getting better at integrating all her appointments to our daily routine. #LupusChat |
| #LupusChat @Lupus_Chat Q2: Cuáles son los 3 temas relacionados con Lupus que más esperas discutir este año? #LupusChat https://t.co/a5iQWuh801 |
| #LupusChat @Lupus_Chat Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A1: A1: I learned that I'm still me, no matter how much lupus steals. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: 1. As a mom and caregiver I have learned that it is very....very important to listen to your body. #LupusChat |
 | Rev. Dr. 4WheelWorkout @4WheelWorkOut RT @Lupus_Chat: Q2: Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A1: A1: I’ve been knowingly living with Lupus for about 10 years now & one thing I’ve learned is that no matter how long one has lived with it, it can still be unpredictable. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q2: Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q2: Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| Caring For Lupus @CaringForLupus A1. Something that I learned is that physical therapy can be prescribed to Lupus patients to help with the joint pain. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @CaringForLupus: 1. As a mom and caregiver I have learned that it is very....very important to listen to your body. #LupusChat |
| Carly by Nature @SynceNerd_Carli @Xtel007 You couldn't send me some before you ate it?! #LupusChat https://t.co/adE6EzQiCc |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @Lupus_Chat A1) Brain fog is not just forgetting things. It also limits concentration and impairs the ability to focus. #LupusChat |
| Caring For Lupus @CaringForLupus RT @itsmorenamorena: @Lupus_Chat A1) Brain fog is not just forgetting things. It also limits concentration and impairs the ability to focus. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1. I also learned that, as I learn more about myself and how I respond to things, I'm able to take care of myself better and with more kindness, which in turn helps keep my disease activity at bay. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1. Something that I learned is that physical therapy can be prescribed to Lupus patients to help with the joint pain. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1. Something that I learned is that physical therapy can be prescribed to Lupus patients to help with the joint pain. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2: Q2: Cuáles son los 3 temas relacionados con Lupus que más esperas discutir este año? #LupusChat https://t.co/a5iQWuh801 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2: Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q2: Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| itsmorenamorena @itsmorenamorena RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : My gastrointestinal symptoms seem to be connected. Symptoms worsen with stress. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @CaringForLupus: A1. My husband says that since Miah's diagnosis he has learned to cope with all the changes that comes with living with Lupus #LupusChat |
| Carly by Nature @SynceNerd_Carli A2 #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Xtel007: A1. I learned about the role patients have, both as participants (in clinical trials etc), and also in the design. We know ourselves best, so we know what we want from our treatments and how we want to be cared for. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Xtel007: A1. I also learned that, as I learn more about myself and how I respond to things, I'm able to take care of myself better and with more kindness, which in turn helps keep my disease activity at bay. #LupusChat |
| You cant fight the good fight if you're dead @sickysummie RT @SynceNerd_Carli: A2 #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @itsmorenamorena: @Lupus_Chat A1) Brain fog is not just forgetting things. It also limits concentration and impairs the ability to focus. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A2: 3 topics I’m hoping to discuss this year at #LupusChat are -- social security disability, dental health, and sex health. |
| Carly by Nature @SynceNerd_Carli @arrghgtr @Lupus_Chat I agree. There are treatments on the horizon and hopefully soon we will be discussing a cure and how to make it available to all. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: 3 topics I’m hoping to discuss this year at #LupusChat are -- social security disability, dental health, and sex health. |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Q2: Q2: Cuáles son los 3 temas relacionados con Lupus que más esperas discutir este año? #LupusChat https://t.co/a5iQWuh801 |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Q2: Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2: Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A2: A2: 3 topics I’m hoping to discuss this year at #LupusChat are -- social security disability, dental health, and sex health. |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A2: A2: 3 topics I’m hoping to discuss this year at #LupusChat are -- social security disability, dental health, and sex health. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2: Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @arrghgtr @Lupus_Chat I agree. There are treatments on the horizon and hopefully soon we will be discussing a cure and how to make it available to all. #LupusChat |
| Carly by Nature @SynceNerd_Carli @ObiterDictum101 @Lupus_Chat A1: yes! So much new research being funded and hopefully they will lead to better treatments and eventually a cure. #LupusChat |
| itsmorenamorena @itsmorenamorena @Lupus_Chat Being back in grad school, this limitation showed up really quickly, and adjusting has been a challenge😕 #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @ObiterDictum101 @Lupus_Chat A1: @ObiterDictum101 @Lupus_Chat A1: yes! So much new research being funded and hopefully they will lead to better treatments and eventually a cure. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @arrghgtr @Lupus_Chat A2. Cure/treatments/medication Nutrition Traveling with lupus #LupusChat |
| itsmorenamorena @itsmorenamorena RT @SynceNerd_Carli: A2 #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @arrghgtr @Lupus_Chat A2. Cure/treatments/medication Nutrition Traveling with lupus #LupusChat |
| Caring For Lupus @CaringForLupus A1 Miah learned how important it is to protect her scalp as well as her skin... She wears hats... And in July we went to South ☀ Jersey and Miah forgot 😯 her hat. The following day she had sunburn on her scalp.... #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Can you share something new that you learned about living with Lupus? #LupusChat https://t.co/br56X5fHA3 |
| #LupusChat @Lupus_Chat Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/6dlir0IXxv |
| #LupusChat @Lupus_Chat Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/2QyPcjuZC9 |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A2 : I want to learn more about the effectives of the disease and meds on organs, dental health and joints/joint pain. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/2QyPcjuZC9 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/6dlir0IXxv |
| You cant fight the good fight if you're dead @sickysummie A2: I'd like to discuss the changeability and systemic effects, as well as the many ways ppl fall outside the diagnostic criteria. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. I want to discuss 1. tracking symptoms and lab work, 2. how we can better support each other as a community, and also 3. the idea of making our "new normal" a life that we're happy to live. #LupusChat |
| Caring For Lupus @CaringForLupus RT @CaringForLupus: A1. Something that I learned is that physical therapy can be prescribed to Lupus patients to help with the joint pain. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2: A2: 3 topics I’m hoping to discuss this year at #LupusChat are -- social security disability, dental health, and sex health. |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: @ObiterDictum101 @Lupus_Chat A1: @ObiterDictum101 @Lupus_Chat A1: yes! So much new research being funded and hopefully they will lead to better treatments and eventually a cure. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I want to learn more about the effectives of the disease and meds on organs, dental health and joints/joint pain. #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @arrghgtr @Lupus_Chat A2. Cure/treatments/medication Nutrition Traveling with lupus #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @sickysummie: A2: A2: I'd like to discuss the changeability and systemic effects, as well as the many ways ppl fall outside the diagnostic criteria. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2. I want to discuss 1. tracking symptoms and lab work, 2. how we can better support each other as a community, and also 3. the idea of making our "new normal" a life that we're happy to live. #LupusChat |
| Caring For Lupus @CaringForLupus RT @sickysummie: A2: A2: I'd like to discuss the changeability and systemic effects, as well as the many ways ppl fall outside the diagnostic criteria. #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I want to learn more about the effectives of the disease and meds on organs, dental health and joints/joint pain. #LupusChat |
| #LupusChat @Lupus_Chat Stay tuned for Question 3, submitted by a #LupusChat community member. https://t.co/dKjWvPG5iu |
| #LupusChat @Lupus_Chat Estén atentos a la pregunta 3, formulada por un miembro de la comunidad #LupusChat. https://t.co/y2TciS3ahO |
| Carly by Nature @SynceNerd_Carli RT @sickysummie: A2: A2: I'd like to discuss the changeability and systemic effects, as well as the many ways ppl fall outside the diagnostic criteria. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I want to learn more about the effectives of the disease and meds on organs, dental health and joints/joint pain. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I want to learn more about the effectives of the disease and meds on organs, dental health and joints/joint pain. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1 Miah learned how important it is to protect her scalp as well as her skin... She wears hats... And in July we went to South ☀ Jersey and Miah forgot 😯 her hat. The following day she had sunburn on her scalp.... #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A1 Miah learned how important it is to protect her scalp as well as her skin... She wears hats... And in July we went to South ☀ Jersey and Miah forgot 😯 her hat. The following day she had sunburn on her scalp.... #LupusChat |
| RaquelRoschell @raquelonpurpose @TiffanyAndLupus @Lupus_Chat A2 : Yes - sex health came to mind! #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @TiffanyAndLupus @Lupus_Chat A2 : @TiffanyAndLupus @Lupus_Chat A2 : Yes - sex health came to mind! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A2: A2: 3 topics I’m hoping to discuss this year at #LupusChat are -- social security disability, dental health, and sex health. |
| #LupusChat @Lupus_Chat RT @Xtel007: A2. I want to discuss 1. tracking symptoms and lab work, 2. how we can better support each other as a community, and also 3. the idea of making our "new normal" a life that we're happy to live. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: A2: A2: I'd like to discuss the changeability and systemic effects, as well as the many ways ppl fall outside the diagnostic criteria. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/6dlir0IXxv |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/2QyPcjuZC9 |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu A2. I only have one. Same question as always. How can I be more supportive of my friends with Lupus? #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @CaringForLupus: A1. Something that I learned is that physical therapy can be prescribed to Lupus patients to help with the joint pain. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/2QyPcjuZC9 |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I want to learn more about the effectives of the disease and meds on organs, dental health and joints/joint pain. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Tinu: A2. I only have one. Same question as always. How can I be more supportive of my friends with Lupus? #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I want to learn more about the effectives of the disease and meds on organs, dental health and joints/joint pain. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @SynceNerd_Carli: A2 #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/2QyPcjuZC9 |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @TiffanyAndLupus @Lupus_Chat A2 : @TiffanyAndLupus @Lupus_Chat A2 : Yes - sex health came to mind! #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @SynceNerd_Carli: @arrghgtr @Lupus_Chat I agree. There are treatments on the horizon and hopefully soon we will be discussing a cure and how to make it available to all. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A2: A2: I'd like to discuss the changeability and systemic effects, as well as the many ways ppl fall outside the diagnostic criteria. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2 #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @iveyjanette_207: @arrghgtr @Lupus_Chat A2. Cure/treatments/medication Nutrition Traveling with lupus #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/2QyPcjuZC9 |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/6dlir0IXxv |
| #LupusChat @Lupus_Chat RT @Tinu: A2. I only have one. Same question as always. How can I be more supportive of my friends with Lupus? #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @TiffanyAndLupus @Lupus_Chat A2 : @TiffanyAndLupus @Lupus_Chat A2 : Yes - sex health came to mind! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2. I want to discuss 1. tracking symptoms and lab work, 2. how we can better support each other as a community, and also 3. the idea of making our "new normal" a life that we're happy to live. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A2. I want to discuss 1. tracking symptoms and lab work, 2. how we can better support each other as a community, and also 3. the idea of making our "new normal" a life that we're happy to live. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Tinu: A2. I only have one. Same question as always. How can I be more supportive of my friends with Lupus? #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Tinu: A2. I only have one. Same question as always. How can I be more supportive of my friends with Lupus? #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:2 Hm 🤔 Don't know if they will be discussed, but... Patient rights Advocating for oneself? "Firing" doctors These topics are more important than I thought. Can you tell I've been through somethings? 😳 #LupusChat https://t.co/cbDGq3dTwX |
| #LupusChat @Lupus_Chat No topic is taboo! If you have a question that you’d like to have shared & answered by the community please share them with us now. #LupusChat https://t.co/JVvDItt1jo |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @FKLUPUS: A:2 Hm 🤔 Don't know if they will be discussed, but... Patient rights Advocating for oneself? "Firing" doctors These topics are more important than I thought. Can you tell I've been through somethings? 😳 #LupusChat https://t.co/cbDGq3dTwX |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @FKLUPUS I'm a huge advocate of firing doctors if things aren't working out! All these are great ideas. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus @itsmorenamorena @Lupus_Chat This is one the reasons why I started a reading challenge this year. Brain fog has been gradually increasing as the years go by so I’m hoping to regain my focus. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: No topic is taboo! If you have a question that you’d like to have shared & answered by the community please share them with us now. #LupusChat https://t.co/JVvDItt1jo |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:2 Hm 🤔 Don't know if they will be discussed, but... Patient rights Advocating for oneself? "Firing" doctors These topics are more important than I thought. Can you tell I've been through somethings? 😳 #LupusChat https://t.co/cbDGq3dTwX |
| itsmorenamorena @itsmorenamorena @Lupus_Chat A2) 1- Nutrition and not just inflammation triggers. What should I be eating/drinking/taking for optimal functioning? 2- Preparing for when self-care is no longer an option; I don't want to call it elder care, because I might not be old 😜! 3- Offline support options #LupusChat |
| itsmorenamorena @itsmorenamorena RT @TiffanyAndLupus: A2: A2: 3 topics I’m hoping to discuss this year at #LupusChat are -- social security disability, dental health, and sex health. |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: No topic is taboo! If you have a question that you’d like to have shared & answered by the community please share them with us now. #LupusChat https://t.co/JVvDItt1jo |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: No topic is taboo! If you have a question that you’d like to have shared & answered by the community please share them with us now. #LupusChat https://t.co/JVvDItt1jo |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:2 Hm 🤔 Don't know if they will be discussed, but... Patient rights Advocating for oneself? "Firing" doctors These topics are more important than I thought. Can you tell I've been through somethings? 😳 #LupusChat https://t.co/cbDGq3dTwX |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @itsmorenamorena: @Lupus_Chat A1) Brain fog is not just forgetting things. It also limits concentration and impairs the ability to focus. #LupusChat |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat A2) 1- Nutrition and not just inflammation triggers. What should I be eating/drinking/taking for optimal functioning? 2- Preparing for when self-care is no longer an option; I don't want to call it elder care, because I might not be old 😜! 3- Offline support options #LupusChat |
| #LupusChat @Lupus_Chat Q3: ¿Cuáles son algunos consejos para discutir el lupus y / o las brechas en el empleo debido a una enfermedad con futuros empleadores? Enviado por @xtel007 #LupusChat https://t.co/5rkWBOIoER |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: No topic is taboo! If you have a question that you’d like to have shared & answered by the community please share them with us now. #LupusChat https://t.co/JVvDItt1jo |
| Carly by Nature @SynceNerd_Carli RT @FKLUPUS: A:2 Hm 🤔 Don't know if they will be discussed, but... Patient rights Advocating for oneself? "Firing" doctors These topics are more important than I thought. Can you tell I've been through somethings? 😳 #LupusChat https://t.co/cbDGq3dTwX |
| Friends AgainstLupus @AgainstLupus RT @itsmorenamorena: @Lupus_Chat A2) 1- Nutrition and not just inflammation triggers. What should I be eating/drinking/taking for optimal functioning? 2- Preparing for when self-care is no longer an option; I don't want to call it elder care, because I might not be old 😜! 3- Offline support options #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat A2) 1- Nutrition and not just inflammation triggers. What should I be eating/drinking/taking for optimal functioning? 2- Preparing for when self-care is no longer an option; I don't want to call it elder care, because I might not be old 😜! 3- Offline support options #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: No topic is taboo! If you have a question that you’d like to have shared & answered by the community please share them with us now. #LupusChat https://t.co/JVvDItt1jo |
| Caring For Lupus @CaringForLupus RT @itsmorenamorena: @Lupus_Chat A2) 1- Nutrition and not just inflammation triggers. What should I be eating/drinking/taking for optimal functioning? 2- Preparing for when self-care is no longer an option; I don't want to call it elder care, because I might not be old 😜! 3- Offline support options #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @Lupus_Chat A2) 1- Nutrition and not just inflammation triggers. What should I be eating/drinking/taking for optimal functioning? 2- Preparing for when self-care is no longer an option; I don't want to call it elder care, because I might not be old 😜! 3- Offline support options #LupusChat |
| itsmorenamorena @itsmorenamorena @TiffanyAndLupus @Lupus_Chat It's so real, and so time-consuming to get a handle around. A reading challenge sounds good, especially if it is material of interest! #LupusChat |
| itsmorenamorena @itsmorenamorena RT @iveyjanette_207: @arrghgtr @Lupus_Chat A2. Cure/treatments/medication Nutrition Traveling with lupus #LupusChat |
| Caring For Lupus @CaringForLupus RT @FKLUPUS: A:2 Hm 🤔 Don't know if they will be discussed, but... Patient rights Advocating for oneself? "Firing" doctors These topics are more important than I thought. Can you tell I've been through somethings? 😳 #LupusChat https://t.co/cbDGq3dTwX |
| itsmorenamorena @itsmorenamorena RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I want to learn more about the effectives of the disease and meds on organs, dental health and joints/joint pain. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @sickysummie: A2: A2: I'd like to discuss the changeability and systemic effects, as well as the many ways ppl fall outside the diagnostic criteria. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @Xtel007: A2. I want to discuss 1. tracking symptoms and lab work, 2. how we can better support each other as a community, and also 3. the idea of making our "new normal" a life that we're happy to live. #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:1 Something not-so-new I learned is that it's vital to fight for yourself& listen to your body. You feel like something isn't right, fight. For the 1st time in years I'm not in remission bc I went against my better judgement & listened to a doc vs MY medical history. #LupusChat https://t.co/EmR5M9IiXG |
| itsmorenamorena @itsmorenamorena RT @raquelonpurpose: @TiffanyAndLupus @Lupus_Chat A2 : @TiffanyAndLupus @Lupus_Chat A2 : Yes - sex health came to mind! #LupusChat |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:1 Something not-so-new I learned is that it's vital to fight for yourself& listen to your body. You feel like something isn't right, fight. For the 1st time in years I'm not in remission bc I went against my better judgement & listened to a doc vs MY medical history. #LupusChat https://t.co/EmR5M9IiXG |
| itsmorenamorena @itsmorenamorena RT @FKLUPUS: A:2 Hm 🤔 Don't know if they will be discussed, but... Patient rights Advocating for oneself? "Firing" doctors These topics are more important than I thought. Can you tell I've been through somethings? 😳 #LupusChat https://t.co/cbDGq3dTwX |
| #LupusChat @Lupus_Chat Q3: What are some tips to discussing Lupus and/or gaps in employment due to illness with future employers? Submitted by @xtel007 #LupusChat https://t.co/T6yPxVDAwz |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q3: What are some tips to discussing Lupus and/or gaps in employment due to illness with future employers? Submitted by @xtel007 #LupusChat https://t.co/T6yPxVDAwz |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q3: What are some tips to discussing Lupus and/or gaps in employment due to illness with future employers? Submitted by @xtel007 #LupusChat https://t.co/T6yPxVDAwz |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @itsmorenamorena @Lupus_Chat I want to find a way to compile offline resources (support groups and events etc) accross diff states that people can have access to. We always try to share stuff when they come up. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus @itsmorenamorena @Lupus_Chat Yup, I’m using the @goodreads app to track my reading. I’m already on book number 4 so far 😊 #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: @itsmorenamorena @Lupus_Chat I want to find a way to compile offline resources (support groups and events etc) accross diff states that people can have access to. We always try to share stuff when they come up. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q3: What are some tips to discussing Lupus and/or gaps in employment due to illness with future employers? Submitted by @xtel007 #LupusChat https://t.co/T6yPxVDAwz |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @TiffanyAndLupus @Lupus_Chat It's so real, and so time-consuming to get a handle around. A reading challenge sounds good, especially if it is material of interest! #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A3. Hmmm. That question has never came up in job interviews. Only after the fact when co-workers asked about the swelling in my leg and wrist. #LupusChat |
| Carly by Nature @SynceNerd_Carli @ObiterDictum101 @Lupus_Chat Great suggestion! We have a #LupusChat series called the #ChronicCoalition where we discus rheumatic diseases impacting the chronic illness community. To date, we've featured Raynaud's, Sjogrens, Ms, Fibromyalgia, and more. We'll add yours to the list for future chats. 😊 |
| Carly by Nature @SynceNerd_Carli RT @Tinu: A2. I only have one. Same question as always. How can I be more supportive of my friends with Lupus? #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A3. Hmmm. That question has never came up in job interviews. Only after the fact when co-workers asked about the swelling in my leg and wrist. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @ObiterDictum101 @Lupus_Chat Great suggestion! We have a #LupusChat series called the #ChronicCoalition where we discus rheumatic diseases impacting the chronic illness community. To date, we've featured Raynaud's, Sjogrens, Ms, Fibromyalgia, and more. We'll add yours to the list for future chats. 😊 |
| Carly by Nature @SynceNerd_Carli #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q3: What are some tips to discussing Lupus and/or gaps in employment due to illness with future employers? Submitted by @xtel007 #LupusChat https://t.co/T6yPxVDAwz |
| RaquelRoschell @raquelonpurpose RT @iveyjanette_207: @Lupus_Chat A3. Hmmm. That question has never came up in job interviews. Only after the fact when co-workers asked about the swelling in my leg and wrist. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @FKLUPUS: A:1 Something not-so-new I learned is that it's vital to fight for yourself& listen to your body. You feel like something isn't right, fight. For the 1st time in years I'm not in remission bc I went against my better judgement & listened to a doc vs MY medical history. #LupusChat https://t.co/EmR5M9IiXG |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3: What are some tips to discussing Lupus and/or gaps in employment due to illness with future employers? Submitted by @xtel007 #LupusChat https://t.co/T6yPxVDAwz |
| Rachel F F@#K LUPUS @FKLUPUS #LupusChat How would you handle a physician falsely stating to a surgeon you are "noncompliant" and therefore should deny medically necessary surgery AFTER you requested to be referred to another physician? https://t.co/ZOASRn5OjX |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @itsmorenamorena @Lupus_Chat I want to find a way to compile offline resources (support groups and events etc) accross diff states that people can have access to. We always try to share stuff when they come up. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:1 Something not-so-new I learned is that it's vital to fight for yourself& listen to your body. You feel like something isn't right, fight. For the 1st time in years I'm not in remission bc I went against my better judgement & listened to a doc vs MY medical history. #LupusChat https://t.co/EmR5M9IiXG |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A3. Hmmm. That question has never came up in job interviews. Only after the fact when co-workers asked about the swelling in my leg and wrist. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @TiffanyAndLupus @Lupus_Chat It's so real, and so time-consuming to get a handle around. A reading challenge sounds good, especially if it is material of interest! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: @itsmorenamorena @Lupus_Chat Yup, I’m using the @goodreads app to track my reading. I’m already on book number 4 so far 😊 #LupusChat |
| #LupusChat @Lupus_Chat RT @FKLUPUS: #LupusChat How would you handle a physician falsely stating to a surgeon you are "noncompliant" and therefore should deny medically necessary surgery AFTER you requested to be referred to another physician? https://t.co/ZOASRn5OjX |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2. I want to discuss 1. tracking symptoms and lab work, 2. how we can better support each other as a community, and also 3. the idea of making our "new normal" a life that we're happy to live. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @TiffanyAndLupus @Lupus_Chat A2 : @TiffanyAndLupus @Lupus_Chat A2 : Yes - sex health came to mind! #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat @Xtel007 A3. Not sure. I never brought it up during job interviews. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3: ¿Cuáles son algunos consejos para discutir el lupus y / o las brechas en el empleo debido a una enfermedad con futuros empleadores? Enviado por @xtel007 #LupusChat https://t.co/5rkWBOIoER |
| itsmorenamorena @itsmorenamorena @TiffanyAndLupus @Lupus_Chat @goodreads I listen to podcasts more, but I miss reading for pleasure. Maybe if I added a book a quarter to my full schedule, maybe that could help. I have about 3 new books I've received in the last year that I haven't even touched. I'll pick one LOL #LupusChat |
| Caring For Lupus @CaringForLupus RT @itsmorenamorena: @TiffanyAndLupus @Lupus_Chat @goodreads I listen to podcasts more, but I miss reading for pleasure. Maybe if I added a book a quarter to my full schedule, maybe that could help. I have about 3 new books I've received in the last year that I haven't even touched. I'll pick one LOL #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat @Xtel007 A3. Not sure. I never brought it up during job interviews. #LupusChat |
| Caring For Lupus @CaringForLupus RT @FKLUPUS: #LupusChat How would you handle a physician falsely stating to a surgeon you are "noncompliant" and therefore should deny medically necessary surgery AFTER you requested to be referred to another physician? https://t.co/ZOASRn5OjX |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A3. Hmmm. That question has never came up in job interviews. Only after the fact when co-workers asked about the swelling in my leg and wrist. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @FKLUPUS: #LupusChat How would you handle a physician falsely stating to a surgeon you are "noncompliant" and therefore should deny medically necessary surgery AFTER you requested to be referred to another physician? https://t.co/ZOASRn5OjX |
| Caring For Lupus @CaringForLupus RT @Xtel007: @itsmorenamorena @Lupus_Chat I want to find a way to compile offline resources (support groups and events etc) accross diff states that people can have access to. We always try to share stuff when they come up. #LupusChat |
| Caring For Lupus @CaringForLupus RT @FKLUPUS: A:1 Something not-so-new I learned is that it's vital to fight for yourself& listen to your body. You feel like something isn't right, fight. For the 1st time in years I'm not in remission bc I went against my better judgement & listened to a doc vs MY medical history. #LupusChat https://t.co/EmR5M9IiXG |
| itsmorenamorena @itsmorenamorena @TiffanyAndLupus @Lupus_Chat @goodreads And I need to update my GoodReads account lawdhafmercy! 🤣🤣😂 #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @iveyjanette_207 @Lupus_Chat It hasn't come up yet. But I wanna be prepared, I guess. #LupusChat |
| itsmorenamorena @itsmorenamorena How do you engage in physical fitness? Is exercise a part of your life? #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Q3: What are some tips to discussing Lupus and/or gaps in employment due to illness with future employers? Submitted by @xtel007 #LupusChat https://t.co/T6yPxVDAwz |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Q3: ¿Cuáles son algunos consejos para discutir el lupus y / o las brechas en el empleo debido a una enfermedad con futuros empleadores? Enviado por @xtel007 #LupusChat https://t.co/5rkWBOIoER |
| Carly by Nature @SynceNerd_Carli A3: This is a tough one! I don't disclose in full, initially. I'll usually explain gaps as "I got sick and had to stop working for a while". If the job gets secured, after a while, I'll disclose to HR. I also tell them I'm volunteering during that time which is true #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: This is a tough one! I don't disclose in full, initially. I'll usually explain gaps as "I got sick and had to stop working for a while". If the job gets secured, after a while, I'll disclose to HR. I also tell them I'm volunteering during that time which is true #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat @Xtel007 A3. Not sure. I never brought it up during job interviews. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: This is a tough one! I don't disclose in full, initially. I'll usually explain gaps as "I got sick and had to stop working for a while". If the job gets secured, after a while, I'll disclose to HR. I also tell them I'm volunteering during that time which is true #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: ¡Esta es una pregunta difícil! No divulgo en su totalidad, inicialmente. Por lo general, explicaré las brechas como "Me enfermé y tuve que dejar de trabajar por un tiempo". #LupusChat |
| itsmorenamorena @itsmorenamorena @Lupus_Chat @Xtel007 A3) Haven't had to thus far. Looking to see other responses on this. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: Si el trabajo se asegura, después de un tiempo, lo revelaré a Recursos Humanos. También les digo que soy voluntario durante ese tiempo, lo cual es cierto #LupusChat |
| itsmorenamorena @itsmorenamorena RT @Xtel007: @itsmorenamorena @Lupus_Chat I want to find a way to compile offline resources (support groups and events etc) accross diff states that people can have access to. We always try to share stuff when they come up. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A3: A3: This is a tough one! I don't disclose in full, initially. I'll usually explain gaps as "I got sick and had to stop working for a while". If the job gets secured, after a while, I'll disclose to HR. I also tell them I'm volunteering during that time which is true #LupusChat |
 | Little Miss Rogers @BbygrlRogers @Lupus_Chat A1:You can’t feel better just by pushing yourself. You don’t just “get over it”. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @SynceNerd_Carli: A3: A3: This is a tough one! I don't disclose in full, initially. I'll usually explain gaps as "I got sick and had to stop working for a while". If the job gets secured, after a while, I'll disclose to HR. I also tell them I'm volunteering during that time which is true #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A3: A3: This is a tough one! I don't disclose in full, initially. I'll usually explain gaps as "I got sick and had to stop working for a while". If the job gets secured, after a while, I'll disclose to HR. I also tell them I'm volunteering during that time which is true #LupusChat |
| #LupusChat @Lupus_Chat Q4: How do you engage in physical fitness? Is exercise a part of your life? (via @itsmorenamorena) #LupusChat https://t.co/Nskf5oFWn4 |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: @itsmorenamorena @Lupus_Chat I want to find a way to compile offline resources (support groups and events etc) accross diff states that people can have access to. We always try to share stuff when they come up. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3: A3: Si el trabajo se asegura, después de un tiempo, lo revelaré a Recursos Humanos. También les digo que soy voluntario durante ese tiempo, lo cual es cierto #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat @Xtel007 A3) Haven't had to thus far. Looking to see other responses on this. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat @Xtel007 A3. Not sure. I never brought it up during job interviews. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3: A3: This is a tough one! I don't disclose in full, initially. I'll usually explain gaps as "I got sick and had to stop working for a while". If the job gets secured, after a while, I'll disclose to HR. I also tell them I'm volunteering during that time which is true #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4: How do you engage in physical fitness? Is exercise a part of your life? (via @itsmorenamorena) #LupusChat https://t.co/Nskf5oFWn4 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4: How do you engage in physical fitness? Is exercise a part of your life? (via @itsmorenamorena) #LupusChat https://t.co/Nskf5oFWn4 |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q4: How do you engage in physical fitness? Is exercise a part of your life? (via @itsmorenamorena) #LupusChat https://t.co/Nskf5oFWn4 |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q4: How do you engage in physical fitness? Is exercise a part of your life? (via @itsmorenamorena) #LupusChat https://t.co/Nskf5oFWn4 |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat @Xtel007 A3) Haven't had to thus far. Looking to see other responses on this. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Si el trabajo se asegura, después de un tiempo, lo revelaré a Recursos Humanos. También les digo que soy voluntario durante ese tiempo, lo cual es cierto #LupusChat |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @Lupus_Chat A1:You can’t feel better just by pushing yourself. You don’t just “get over it”. #LupusChat |
| Caring For Lupus @CaringForLupus A2 Miah's dad says * A package/kit for the newly diagnosed * Research and treatments on skin Lupus * Lupus Awareness on the news #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| Little Miss Rogers @BbygrlRogers @Lupus_Chat Happy New Year,all! Lydia from California. I enjoy long walks (really). I had a bowl of oatmeal with berries. Starting off right.😁#LupusChat |
| RaquelRoschell @raquelonpurpose A3 : I am an employer and I would want you to be able to discuss it. I would want to know upfront.If you're going to be missing days I would like to know in advance. I would be understanding. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: Si el trabajo se asegura, después de un tiempo, lo revelaré a Recursos Humanos. También les digo que soy voluntario durante ese tiempo, lo cual es cierto #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat @itsmorenamorena A4. I used to be very active until 5 years ago after I got hit by a car and having knee surgery as a result. Other than my very physical job,I'm not active at all. One of my 2020 goals is to start exercising again. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: A3 : A3 : I am an employer and I would want you to be able to discuss it. I would want to know upfront.If you're going to be missing days I would like to know in advance. I would be understanding. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat @itsmorenamorena A4. I used to be very active until 5 years ago after I got hit by a car and having knee surgery as a result. Other than my very physical job,I'm not active at all. One of my 2020 goals is to start exercising again. #LupusChat |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @Lupus_Chat Happy New Year,all! Lydia from California. I enjoy long walks (really). I had a bowl of oatmeal with berries. Starting off right.😁#LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 Miah's dad says * A package/kit for the newly diagnosed * Research and treatments on skin Lupus * Lupus Awareness on the news #LupusChat |
| itsmorenamorena @itsmorenamorena RT @iveyjanette_207: @Lupus_Chat @itsmorenamorena A4. I used to be very active until 5 years ago after I got hit by a car and having knee surgery as a result. Other than my very physical job,I'm not active at all. One of my 2020 goals is to start exercising again. #LupusChat |
| #LupusChat @Lupus_Chat Q4: Cómo toma parte en la salud física? ¿Es el ejercicio una parte de su vida? (via @itsmorenamorena) #LupusChat https://t.co/cSmp3k4xiZ |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q4: How do you engage in physical fitness? Is exercise a part of your life? (via @itsmorenamorena) #LupusChat https://t.co/Nskf5oFWn4 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. Yep, been working out. Ok well, I fell off at the end of the year, but actually went back today. I notice that it helps a lot. The "exercise fatigue" lessens the "Lupus fatigue", if that makes sense. #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:4 #LupusChat My exercise consists of doing daily activities/work, but working towards utilizing my home gym. 🤷 https://t.co/YB0CzFzfSY |
| #LupusChat @Lupus_Chat Q5: How would you handle a physician falsely reporting you've been non-compliant (causing denial of care elsewhere) AFTER you've requested to leave their care? Submitted by @FKLUPUS #LupusChat https://t.co/hdjxUAsk1y |
| RaquelRoschell @raquelonpurpose @Lupus_Chat @itsmorenamorena A4 : Up until last week it has been mostly walking and some days on a home exercise bike. I joined a fitness center last week. Pacing myself. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @raquelonpurpose How can I, as someone looking for employment, can be honest and appease your worries? #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A4: I do gentle stretches so my muscles can relieve tightness. I use 1 pound weights for muscle strengthening & I try to dance to a playlist of favorite songs. (cc @itsmorenamorena) #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. Yep, been working out. Ok well, I fell off at the end of the year, but actually went back today. I notice that it helps a lot. The "exercise fatigue" lessens the "Lupus fatigue", if that makes sense. #LupusChat |
| Little Miss Rogers @BbygrlRogers @Lupus_Chat A2: Adjusting to changing roles as a result of chronic illness, impact on people of color,alternative health solutions/resources #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat @itsmorenamorena A4 : @Lupus_Chat @itsmorenamorena A4 : Up until last week it has been mostly walking and some days on a home exercise bike. I joined a fitness center last week. Pacing myself. #LupusChat |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @Lupus_Chat A2: @Lupus_Chat A2: Adjusting to changing roles as a result of chronic illness, impact on people of color,alternative health solutions/resources #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: I do gentle stretches so my muscles can relieve tightness. I use 1 pound weights for muscle strengthening & I try to dance to a playlist of favorite songs. (cc @itsmorenamorena) #LupusChat |
| itsmorenamorena @itsmorenamorena @iveyjanette_207 @Lupus_Chat A4) I've done yoga, water aerobics, walking, exercise ball activities (although those are more appropriate for that sex-related #LupusChat conversation🤣😜😊), but I haven't stuck with anything. I've thought about getting a trainer this year, but worry about fatigue. |
| itsmorenamorena @itsmorenamorena RT @TiffanyAndLupus: A4: A4: I do gentle stretches so my muscles can relieve tightness. I use 1 pound weights for muscle strengthening & I try to dance to a playlist of favorite songs. (cc @itsmorenamorena) #LupusChat |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @iveyjanette_207 @Lupus_Chat A4) I've done yoga, water aerobics, walking, exercise ball activities (although those are more appropriate for that sex-related #LupusChat conversation🤣😜😊), but I haven't stuck with anything. I've thought about getting a trainer this year, but worry about fatigue. |
| itsmorenamorena @itsmorenamorena RT @raquelonpurpose: @Lupus_Chat @itsmorenamorena A4 : @Lupus_Chat @itsmorenamorena A4 : Up until last week it has been mostly walking and some days on a home exercise bike. I joined a fitness center last week. Pacing myself. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q5: How would you handle a physician falsely reporting you've been non-compliant (causing denial of care elsewhere) AFTER you've requested to leave their care? Submitted by @FKLUPUS #LupusChat https://t.co/hdjxUAsk1y |
| #LupusChat @Lupus_Chat A5: ¿Cómo manejaría a un médico que informa falsamente que no cumplió (causando la denegación de atención en otro lugar) DESPUÉS de solicitar un nuevo médico? Enviado por @FKLUPUS #LupusChat https://t.co/AZddQCesz5 |
| #LupusChat @Lupus_Chat Agradeciendo a cada uno de ustedes por unirse a nuestro #LupusChat Community Forum, hoy. Agradecemos todas sus contribuciones a la discusión y a la comunidad. https://t.co/xrfkzmJ8w4 |
| #LupusChat @Lupus_Chat Thanking each of you for joining our #LupusChat Community Forum, today. We appreciate all of your contributions to the discussion and to the community. https://t.co/j8WVUGeXWD |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: A5: A5: ¿Cómo manejaría a un médico que informa falsamente que no cumplió (causando la denegación de atención en otro lugar) DESPUÉS de solicitar un nuevo médico? Enviado por @FKLUPUS #LupusChat https://t.co/AZddQCesz5 |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @iveyjanette_207 @Lupus_Chat A4) I've done yoga, water aerobics, walking, exercise ball activities (although those are more appropriate for that sex-related #LupusChat conversation🤣😜😊), but I haven't stuck with anything. I've thought about getting a trainer this year, but worry about fatigue. |
| Carly by Nature @SynceNerd_Carli RT @BbygrlRogers: @Lupus_Chat A2: @Lupus_Chat A2: Adjusting to changing roles as a result of chronic illness, impact on people of color,alternative health solutions/resources #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A4: A4: I do gentle stretches so my muscles can relieve tightness. I use 1 pound weights for muscle strengthening & I try to dance to a playlist of favorite songs. (cc @itsmorenamorena) #LupusChat |
 | Gemj0009 @gemj0009 RT @Lupus_Chat: Q2: Q2: What are 3 Lupus related topics that you’re most looking forward to discussing this year? #LupusChat https://t.co/fVi7ZLmVEe |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @raquelonpurpose How can I, as someone looking for employment, can be honest and appease your worries? #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. It took me a long time to get to this point. And I am very careful, esp with weights that can hurt my joints. But I slowly build up, and it helps with knee and back pain etc #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: A3 : A3 : I am an employer and I would want you to be able to discuss it. I would want to know upfront.If you're going to be missing days I would like to know in advance. I would be understanding. #LupusChat |
| Gemj0009 @gemj0009 RT @Lupus_Chat: Q3: What are some tips to discussing Lupus and/or gaps in employment due to illness with future employers? Submitted by @xtel007 #LupusChat https://t.co/T6yPxVDAwz |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat @itsmorenamorena A4 : @Lupus_Chat @itsmorenamorena A4 : Up until last week it has been mostly walking and some days on a home exercise bike. I joined a fitness center last week. Pacing myself. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: How would you handle a physician falsely reporting you've been non-compliant (causing denial of care elsewhere) AFTER you've requested to leave their care? Submitted by @FKLUPUS #LupusChat https://t.co/hdjxUAsk1y |
| Carly by Nature @SynceNerd_Carli RT @FKLUPUS: A:4 #LupusChat My exercise consists of doing daily activities/work, but working towards utilizing my home gym. 🤷 https://t.co/YB0CzFzfSY |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A4. Yep, been working out. Ok well, I fell off at the end of the year, but actually went back today. I notice that it helps a lot. The "exercise fatigue" lessens the "Lupus fatigue", if that makes sense. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4: Cómo toma parte en la salud física? ¿Es el ejercicio una parte de su vida? (via @itsmorenamorena) #LupusChat https://t.co/cSmp3k4xiZ |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat @itsmorenamorena A4. I used to be very active until 5 years ago after I got hit by a car and having knee surgery as a result. Other than my very physical job,I'm not active at all. One of my 2020 goals is to start exercising again. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @BbygrlRogers: @Lupus_Chat Happy New Year,all! Lydia from California. I enjoy long walks (really). I had a bowl of oatmeal with berries. Starting off right.😁#LupusChat |
| itsmorenamorena @itsmorenamorena @raquelonpurpose @Lupus_Chat A4) Great ideas! I'm thinking of joining a fitness center in February. I just need my energy level to keep up with my desire to be more active. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus @itsmorenamorena @Lupus_Chat I was at a conference April of last year & a doctor told me she encourages her patients to dance to their favorite music for like 30 minutes. She totally counted that as exercise. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q5: How would you handle a physician falsely reporting you've been non-compliant (causing denial of care elsewhere) AFTER you've requested to leave their care? Submitted by @FKLUPUS #LupusChat https://t.co/hdjxUAsk1y |
| #LupusChat @Lupus_Chat Nuestro próximo #LupusChat será el domingo 19 de enero de 2020 a las 3 p.m., hora del este. ¡Estén atentos para nuestro próximo anuncio de tema y recuerden marcar sus calendarios para guardar la fecha! https://t.co/CEjjZ1Y3c0 |
| #LupusChat @Lupus_Chat Our next #LupusChat will be Sunday January, 19 2020 at 3PM Eastern Time. Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date! https://t.co/aduujPPSqs |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. It took me a long time to get to this point. And I am very careful, esp with weights that can hurt my joints. But I slowly build up, and it helps with knee and back pain etc #LupusChat |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @raquelonpurpose @Lupus_Chat A4) Great ideas! I'm thinking of joining a fitness center in February. I just need my energy level to keep up with my desire to be more active. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: @itsmorenamorena @Lupus_Chat I was at a conference April of last year & a doctor told me she encourages her patients to dance to their favorite music for like 30 minutes. She totally counted that as exercise. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat @FKLUPUS A5. Appeal to insurance/Medicaid/Medi-Cal. Then lawsuit time. #LupusChat |
| #LupusChat @Lupus_Chat Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/pi3p6KDkuS |
| #LupusChat @Lupus_Chat Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfCareSunday! https://t.co/jVD985ltqw |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Our next #LupusChat will be Sunday January, 19 2020 at 3PM Eastern Time. Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date! https://t.co/aduujPPSqs |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu A3. Well first, as soon asI know I’ll be down awhile? I look for flexible advocacy or activist opportunities. As an entrepreneur, even if I donate my services, it’s still work. That I take full credit for. #LupusChat |
| Carly by Nature @SynceNerd_Carli @BbygrlRogers @Lupus_Chat Welcome to #LupusChat Lydia! I think you and one of our co-hosts, @xtel007, have the love of oatmeal in common. 😊 |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu A3. As an employee though, that always stumped me. If you disclose you risk enabling discrimination against you. If you don’t, you risk the omission being used against you. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Tinu: A3. Well first, as soon asI know I’ll be down awhile? I look for flexible advocacy or activist opportunities. As an entrepreneur, even if I donate my services, it’s still work. That I take full credit for. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A4. It took me a long time to get to this point. And I am very careful, esp with weights that can hurt my joints. But I slowly build up, and it helps with knee and back pain etc #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @iveyjanette_207 @Lupus_Chat A4) I've done yoga, water aerobics, walking, exercise ball activities (although those are more appropriate for that sex-related #LupusChat conversation🤣😜😊), but I haven't stuck with anything. I've thought about getting a trainer this year, but worry about fatigue. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Agradeciendo a cada uno de ustedes por unirse a nuestro #LupusChat Community Forum, hoy. Agradecemos todas sus contribuciones a la discusión y a la comunidad. https://t.co/xrfkzmJ8w4 |
| itsmorenamorena @itsmorenamorena @TiffanyAndLupus A4) I love stretching! I guess that is considered exercise, no? And dancing around for half-hour everyday should be easy to do! Thanks for those ideas #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Thanking each of you for joining our #LupusChat Community Forum, today. We appreciate all of your contributions to the discussion and to the community. https://t.co/j8WVUGeXWD |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: @itsmorenamorena @Lupus_Chat I was at a conference April of last year & a doctor told me she encourages her patients to dance to their favorite music for like 30 minutes. She totally counted that as exercise. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. It took me a long time to get to this point. And I am very careful, esp with weights that can hurt my joints. But I slowly build up, and it helps with knee and back pain etc #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Nuestro próximo #LupusChat será el domingo 19 de enero de 2020 a las 3 p.m., hora del este. ¡Estén atentos para nuestro próximo anuncio de tema y recuerden marcar sus calendarios para guardar la fecha! https://t.co/CEjjZ1Y3c0 |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: A3 : A3 : I am an employer and I would want you to be able to discuss it. I would want to know upfront.If you're going to be missing days I would like to know in advance. I would be understanding. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @TiffanyAndLupus: @itsmorenamorena @Lupus_Chat I was at a conference April of last year & a doctor told me she encourages her patients to dance to their favorite music for like 30 minutes. She totally counted that as exercise. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @itsmorenamorena: @TiffanyAndLupus A4) I love stretching! I guess that is considered exercise, no? And dancing around for half-hour everyday should be easy to do! Thanks for those ideas #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat @FKLUPUS A5. Appeal to insurance/Medicaid/Medi-Cal. Then lawsuit time. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/pi3p6KDkuS |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat @itsmorenamorena A4 : @Lupus_Chat @itsmorenamorena A4 : Up until last week it has been mostly walking and some days on a home exercise bike. I joined a fitness center last week. Pacing myself. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfCareSunday! https://t.co/jVD985ltqw |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q5: How would you handle a physician falsely reporting you've been non-compliant (causing denial of care elsewhere) AFTER you've requested to leave their care? Submitted by @FKLUPUS #LupusChat https://t.co/hdjxUAsk1y |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Nuestro próximo #LupusChat será el domingo 19 de enero de 2020 a las 3 p.m., hora del este. ¡Estén atentos para nuestro próximo anuncio de tema y recuerden marcar sus calendarios para guardar la fecha! https://t.co/CEjjZ1Y3c0 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Our next #LupusChat will be Sunday January, 19 2020 at 3PM Eastern Time. Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date! https://t.co/aduujPPSqs |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @FKLUPUS: A:1 Something not-so-new I learned is that it's vital to fight for yourself& listen to your body. You feel like something isn't right, fight. For the 1st time in years I'm not in remission bc I went against my better judgement & listened to a doc vs MY medical history. #LupusChat https://t.co/EmR5M9IiXG |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q5: How would you handle a physician falsely reporting you've been non-compliant (causing denial of care elsewhere) AFTER you've requested to leave their care? Submitted by @FKLUPUS #LupusChat https://t.co/hdjxUAsk1y |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @TiffanyAndLupus A4) I love stretching! I guess that is considered exercise, no? And dancing around for half-hour everyday should be easy to do! Thanks for those ideas #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Tinu: A3. As an employee though, that always stumped me. If you disclose you risk enabling discrimination against you. If you don’t, you risk the omission being used against you. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat @FKLUPUS A5. Appeal to insurance/Medicaid/Medi-Cal. Then lawsuit time. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @itsmorenamorena @TiffanyAndLupus It definitely is exercise. One of my goals is to stretch daily. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @iveyjanette_207: @Lupus_Chat @FKLUPUS A5. Appeal to insurance/Medicaid/Medi-Cal. Then lawsuit time. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. Yep, been working out. Ok well, I fell off at the end of the year, but actually went back today. I notice that it helps a lot. The "exercise fatigue" lessens the "Lupus fatigue", if that makes sense. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @SynceNerd_Carli: @ObiterDictum101 @Lupus_Chat Great suggestion! We have a #LupusChat series called the #ChronicCoalition where we discus rheumatic diseases impacting the chronic illness community. To date, we've featured Raynaud's, Sjogrens, Ms, Fibromyalgia, and more. We'll add yours to the list for future chats. 😊 |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @itsmorenamorena @TiffanyAndLupus It definitely is exercise. One of my goals is to stretch daily. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat @itsmorenamorena A4. I used to be very active until 5 years ago after I got hit by a car and having knee surgery as a result. Other than my very physical job,I'm not active at all. One of my 2020 goals is to start exercising again. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @FKLUPUS: #LupusChat How would you handle a physician falsely stating to a surgeon you are "noncompliant" and therefore should deny medically necessary surgery AFTER you requested to be referred to another physician? https://t.co/ZOASRn5OjX |
| Tiffany ⁷ @TiffanyAndLupus RT @BbygrlRogers: @Lupus_Chat Happy New Year,all! Lydia from California. I enjoy long walks (really). I had a bowl of oatmeal with berries. Starting off right.😁#LupusChat |
| You cant fight the good fight if you're dead @sickysummie A5: I'd ask a trusted MD to add a statement to my chart contradicting the false info. #LupusChat |
| RaquelRoschell @raquelonpurpose @Xtel007 My perspective may be different from other employers. The honesty goes a long way with me. We could discuss a work plan that is beneficial for you and the team. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @raquelonpurpose @Lupus_Chat A4) Great ideas! I'm thinking of joining a fitness center in February. I just need my energy level to keep up with my desire to be more active. #LupusChat |
| Rev. Dr. 4WheelWorkout @4WheelWorkOut RT @Lupus_Chat: Q5: How would you handle a physician falsely reporting you've been non-compliant (causing denial of care elsewhere) AFTER you've requested to leave their care? Submitted by @FKLUPUS #LupusChat https://t.co/hdjxUAsk1y |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Our next #LupusChat will be Sunday January, 19 2020 at 3PM Eastern Time. Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date! https://t.co/aduujPPSqs |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Q4: How do you engage in physical fitness? Is exercise a part of your life? (via @itsmorenamorena) #LupusChat https://t.co/Nskf5oFWn4 |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Our next #LupusChat will be Sunday January, 19 2020 at 3PM Eastern Time. Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date! https://t.co/aduujPPSqs |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Nuestro próximo #LupusChat será el domingo 19 de enero de 2020 a las 3 p.m., hora del este. ¡Estén atentos para nuestro próximo anuncio de tema y recuerden marcar sus calendarios para guardar la fecha! https://t.co/CEjjZ1Y3c0 |
| Little Miss Rogers @BbygrlRogers @Lupus_Chat @SynceNerd_Carli @Xtel007 A3: Focus on your strengths and how you’ve stayed connected to your field while out of work (seminars, volunteer,periodicals). #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Tinu: A3. Well first, as soon asI know I’ll be down awhile? I look for flexible advocacy or activist opportunities. As an entrepreneur, even if I donate my services, it’s still work. That I take full credit for. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @TiffanyAndLupus A4) I love stretching! I guess that is considered exercise, no? And dancing around for half-hour everyday should be easy to do! Thanks for those ideas #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @BbygrlRogers: @Lupus_Chat @SynceNerd_Carli @Xtel007 A3: @Lupus_Chat @SynceNerd_Carli @Xtel007 A3: Focus on your strengths and how you’ve stayed connected to your field while out of work (seminars, volunteer,periodicals). #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @itsmorenamorena @Lupus_Chat My PCP and kidney doctor are referring me to wellness coaching. Hopefully including a trainer to help me get back in shape and create exercises that are lupus adaptable. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Tinu: A3. As an employee though, that always stumped me. If you disclose you risk enabling discrimination against you. If you don’t, you risk the omission being used against you. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @raquelonpurpose That part would come after you've offered me the job, no? #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: @itsmorenamorena @TiffanyAndLupus It definitely is exercise. One of my goals is to stretch daily. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu A4. 2/3 times a week I have a recumbent stationary bike. I prefer a treadmill but it’s what I got. Usually 20 minutes. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu A4. I walk as much as I can, even around the house. I track my steps & have a minimum even for fatigue days. #LupusChat |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @Lupus_Chat @SynceNerd_Carli @Xtel007 A3: @Lupus_Chat @SynceNerd_Carli @Xtel007 A3: Focus on your strengths and how you’ve stayed connected to your field while out of work (seminars, volunteer,periodicals). #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @BbygrlRogers: @Lupus_Chat @SynceNerd_Carli @Xtel007 A3: @Lupus_Chat @SynceNerd_Carli @Xtel007 A3: Focus on your strengths and how you’ve stayed connected to your field while out of work (seminars, volunteer,periodicals). #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @raquelonpurpose: @Xtel007 My perspective may be different from other employers. The honesty goes a long way with me. We could discuss a work plan that is beneficial for you and the team. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfCareSunday! https://t.co/jVD985ltqw |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Our next #LupusChat will be Sunday January, 19 2020 at 3PM Eastern Time. Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date! https://t.co/aduujPPSqs |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Q5: How would you handle a physician falsely reporting you've been non-compliant (causing denial of care elsewhere) AFTER you've requested to leave their care? Submitted by @FKLUPUS #LupusChat https://t.co/hdjxUAsk1y |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @sickysummie: A5: A5: I'd ask a trusted MD to add a statement to my chart contradicting the false info. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @iveyjanette_207: @Lupus_Chat @FKLUPUS A5. Appeal to insurance/Medicaid/Medi-Cal. Then lawsuit time. #LupusChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: A5: A5: ¿Cómo manejaría a un médico que informa falsamente que no cumplió (causando la denegación de atención en otro lugar) DESPUÉS de solicitar un nuevo médico? Enviado por @FKLUPUS #LupusChat https://t.co/AZddQCesz5 |
| Little Miss Rogers @BbygrlRogers @Lupus_Chat @SynceNerd_Carli @FKLUPUS A5: I would report it to the medical board and any other oversight organizations.#LupusChat |
| Carly by Nature @SynceNerd_Carli Thanks to everyone who joined @Lupus_Chat today! We appreciate all the questions you've shared and answered. You can continue answering questions for as long as you like today. Also, keep the conversation going throughout the week by adding the #LupusChat tag to your tweets. https://t.co/6F8Zj6GhpA |
| itsmorenamorena @itsmorenamorena @TiffanyAndLupus @Lupus_Chat Gonna load up a workout playlist and dance to it! At night, so I can fall in bed right after LOL #LupusChat |
| RaquelRoschell @raquelonpurpose @KinkswithKeKe @Xtel007 Completely understand. The thought of someone on my staff suffering or in pain while working and not feeling like they could say something would be sad and unnecessary in my eyes. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus @mxdragoncakes Dancing without leaving bed is also ok too! #LupusChat |
| Little Miss Rogers @BbygrlRogers @Lupus_Chat @itsmorenamorena A4: Yes, I take my dog for walks 3-4 times a week. We walk about 2 miles. I also do daily stretches and strengthening exercises with bands and light weights. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @SynceNerd_Carli: #LupusChat |
| Carly by Nature @SynceNerd_Carli ¡Gracias por unirte a @Lupus_Chat hoy! Agradecemos todas las preguntas que ha compartido y respondido. Puedes seguir respondiendo preguntas durante el tiempo que quieras hoy. Además, mantenga la conversación durante toda la semana agregando la etiqueta #LupusChat a sus tweets. https://t.co/mIL2QL7413 |
| Tiffany ⁷ @TiffanyAndLupus @itsmorenamorena Yup, stretching counts! You’re so welcome 😊💜 #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Thanks to everyone who joined @Lupus_Chat today! We appreciate all the questions you've shared and answered. You can continue answering questions for as long as you like today. Also, keep the conversation going throughout the week by adding the #LupusChat tag to your tweets. https://t.co/6F8Zj6GhpA |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @Lupus_Chat @SynceNerd_Carli @FKLUPUS A5: @Lupus_Chat @SynceNerd_Carli @FKLUPUS A5: I would report it to the medical board and any other oversight organizations.#LupusChat |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @Lupus_Chat @itsmorenamorena A4: @Lupus_Chat @itsmorenamorena A4: Yes, I take my dog for walks 3-4 times a week. We walk about 2 miles. I also do daily stretches and strengthening exercises with bands and light weights. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: ¡Gracias por unirte a @Lupus_Chat hoy! Agradecemos todas las preguntas que ha compartido y respondido. Puedes seguir respondiendo preguntas durante el tiempo que quieras hoy. Además, mantenga la conversación durante toda la semana agregando la etiqueta #LupusChat a sus tweets. https://t.co/mIL2QL7413 |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Thanks to everyone who joined @Lupus_Chat today! We appreciate all the questions you've shared and answered. You can continue answering questions for as long as you like today. Also, keep the conversation going throughout the week by adding the #LupusChat tag to your tweets. https://t.co/6F8Zj6GhpA |
| Tiffany ⁷ @TiffanyAndLupus @itsmorenamorena @Lupus_Chat @goodreads Lol don’t feel bad. Last time I was on goodreads before this week was like 2015 💀. No judgement! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @TiffanyAndLupus @Lupus_Chat @goodreads I listen to podcasts more, but I miss reading for pleasure. Maybe if I added a book a quarter to my full schedule, maybe that could help. I have about 3 new books I've received in the last year that I haven't even touched. I'll pick one LOL #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @KinkswithKeKe @Xtel007 Completely understand. The thought of someone on my staff suffering or in pain while working and not feeling like they could say something would be sad and unnecessary in my eyes. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @BbygrlRogers: @Lupus_Chat @SynceNerd_Carli @FKLUPUS A5: @Lupus_Chat @SynceNerd_Carli @FKLUPUS A5: I would report it to the medical board and any other oversight organizations.#LupusChat |
| You cant fight the good fight if you're dead @sickysummie A4: I stretch daily and walk whenever possible. City living+busing helps with that! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Tinu: A4. I walk as much as I can, even around the house. I track my steps & have a minimum even for fatigue days. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @itsmorenamorena @Lupus_Chat My PCP and kidney doctor are referring me to wellness coaching. Hopefully including a trainer to help me get back in shape and create exercises that are lupus adaptable. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @Xtel007: @raquelonpurpose How can I, as someone looking for employment, can be honest and appease your worries? #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @BbygrlRogers: @Lupus_Chat @SynceNerd_Carli @Xtel007 A3: @Lupus_Chat @SynceNerd_Carli @Xtel007 A3: Focus on your strengths and how you’ve stayed connected to your field while out of work (seminars, volunteer,periodicals). #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Xtel007 My perspective may be different from other employers. The honesty goes a long way with me. We could discuss a work plan that is beneficial for you and the team. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @sickysummie: A5: A5: I'd ask a trusted MD to add a statement to my chart contradicting the false info. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A4: A4: I stretch daily and walk whenever possible. City living+busing helps with that! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Tinu: A4. I walk as much as I can, even around the house. I track my steps & have a minimum even for fatigue days. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @BbygrlRogers: @Lupus_Chat @SynceNerd_Carli @FKLUPUS A5: @Lupus_Chat @SynceNerd_Carli @FKLUPUS A5: I would report it to the medical board and any other oversight organizations.#LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @KinkswithKeKe @Xtel007 Completely understand. The thought of someone on my staff suffering or in pain while working and not feeling like they could say something would be sad and unnecessary in my eyes. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @sickysummie: A4: A4: I stretch daily and walk whenever possible. City living+busing helps with that! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Thanks to everyone who joined @Lupus_Chat today! We appreciate all the questions you've shared and answered. You can continue answering questions for as long as you like today. Also, keep the conversation going throughout the week by adding the #LupusChat tag to your tweets. https://t.co/6F8Zj6GhpA |
| itsmorenamorena @itsmorenamorena @iveyjanette_207 @Lupus_Chat A wellness coach referral. I may ask my doctors about that! Get insurance coverage for it, too. Thanks for that idea! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Exactly! |
| Tiffany ⁷ @TiffanyAndLupus @annmarie_otr @itsmorenamorena @Lupus_Chat I'm a big fan of the fiction/fantasy genre. Currently reading the Throne of Glass series by the author Sarah J. Mass. #LupusChat |
#LupusChat content from Twitter.