#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
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See #LupusChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Carly by Nature @SynceNerd_Carli 🎉 It's #LupusChat tiiiiiiiiime! Let's goooooo! https://t.co/yNqGAC2wIY |
 | #LupusChat @Lupus_Chat Bienvenido a #LupusChat! En discusión de hoy, nos centraremos en la comunicación y su importancia en nuestro plan de atención. Juntos consideraremos métodos para garantizar una comunicación efectiva entre todos los miembros de nuestro equipo de atención. https://t.co/mY0HZUPKfI |
| #LupusChat @Lupus_Chat Welcome to #LupusChat! For today's discussion, we will center communication and its importance in our care plan. Together we'll consider methods of ensuring effective communication amongst all members of our care team. https://t.co/ajGmWMNtwq |
 | RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Welcome to #LupusChat! For today's discussion, we will center communication and its importance in our care plan. Together we'll consider methods of ensuring effective communication amongst all members of our care team. https://t.co/ajGmWMNtwq |
 | Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Welcome to #LupusChat! For today's discussion, we will center communication and its importance in our care plan. Together we'll consider methods of ensuring effective communication amongst all members of our care team. https://t.co/ajGmWMNtwq |
 | Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Welcome to #LupusChat! For today's discussion, we will center communication and its importance in our care plan. Together we'll consider methods of ensuring effective communication amongst all members of our care team. https://t.co/ajGmWMNtwq |
 | Caring For Lupus @CaringForLupus RT @Lupus_Chat: Welcome to #LupusChat! For today's discussion, we will center communication and its importance in our care plan. Together we'll consider methods of ensuring effective communication amongst all members of our care team. https://t.co/ajGmWMNtwq |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Bienvenido a #LupusChat! En discusión de hoy, nos centraremos en la comunicación y su importancia en nuestro plan de atención. Juntos consideraremos métodos para garantizar una comunicación efectiva entre todos los miembros de nuestro equipo de atención. https://t.co/mY0HZUPKfI |
 | Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Welcome to #LupusChat! For today's discussion, we will center communication and its importance in our care plan. Together we'll consider methods of ensuring effective communication amongst all members of our care team. https://t.co/ajGmWMNtwq |
| #LupusChat @Lupus_Chat Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| #LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Tiffany ⁷ @TiffanyAndLupus @bellaproduces @Lupus_Chat Welcome back, Bella! It’s great to see you at #LupusChat today 😊💜 |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: 🎉 It's #LupusChat tiiiiiiiiime! Let's goooooo! https://t.co/yNqGAC2wIY |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| Carly by Nature @SynceNerd_Carli Just a reminder, it's #LupusChat Sunday. You already know that means for the next hour and change it'll be all #Lupus related content over here. Mute as needed or stick around and learn a lil sumn. The choice is yours. https://t.co/1rFw1W1XqI |
| #LupusChat @Lupus_Chat Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/twK4GTTxMJ |
| #LupusChat @Lupus_Chat Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/8Jpu6l3tmv |
| Tiffany ⁷ @TiffanyAndLupus @raquelonpurpose Heyyyyyy Raquel! It’s good to see you today. 💜 #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: @bellaproduces @Lupus_Chat Welcome back, Bella! It’s great to see you at #LupusChat today 😊💜 |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Just a reminder, it's #LupusChat Sunday. You already know that means for the next hour and change it'll be all #Lupus related content over here. Mute as needed or stick around and learn a lil sumn. The choice is yours. https://t.co/1rFw1W1XqI |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/8Jpu6l3tmv |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Just a reminder, it's #LupusChat Sunday. You already know that means for the next hour and change it'll be all #Lupus related content over here. Mute as needed or stick around and learn a lil sumn. The choice is yours. https://t.co/1rFw1W1XqI |
| #LupusChat @Lupus_Chat Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/7widBExVVi |
| #LupusChat @Lupus_Chat Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/h1pgM3wloz |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/h1pgM3wloz |
| RaquelRoschell @raquelonpurpose @TiffanyAndLupus Good to seen and great to see you💜. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/8Jpu6l3tmv |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/h1pgM3wloz |
| #LupusChat @Lupus_Chat Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/ixyHcj00aD |
| #LupusChat @Lupus_Chat As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/BnLFqYIAuS |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/7widBExVVi |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @TiffanyAndLupus Good to seen and great to see you💜. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/BnLFqYIAuS |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/BnLFqYIAuS |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/ixyHcj00aD |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/h1pgM3wloz |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/7widBExVVi |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/BnLFqYIAuS |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/8Jpu6l3tmv |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/twK4GTTxMJ |
| #LupusChat @Lupus_Chat Comencemos nuestra fiesta #LupusChat! Comparta su nombre, de dónde es, un poco sobre usted y qué libro le gustaría leer en 2020? https://t.co/pBcePYEspM |
| #LupusChat @Lupus_Chat Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what book would you like to read in 2020? https://t.co/DQ26RUt0LC |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli I'll be doing #LupusChat and hosting #NFLCommentary simultaneously. |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to #LupusChat! For today's discussion, we will center communication and its importance in our care plan. Together we'll consider methods of ensuring effective communication amongst all members of our care team. https://t.co/ajGmWMNtwq |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what book would you like to read in 2020? https://t.co/DQ26RUt0LC |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what book would you like to read in 2020? https://t.co/DQ26RUt0LC |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: Just a reminder, it's #LupusChat Sunday. You already know that means for the next hour and change it'll be all #Lupus related content over here. Mute as needed or stick around and learn a lil sumn. The choice is yours. https://t.co/1rFw1W1XqI |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Comencemos nuestra fiesta #LupusChat! Comparta su nombre, de dónde es, un poco sobre usted y qué libro le gustaría leer en 2020? https://t.co/pBcePYEspM |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 It's tiiiiiiiime! #LupusChat https://t.co/TxvXOlDwQQ |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @iveyjanette_207 @SynceNerd_Carli A multitasking queen! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus Hello! I’m Tiffany Marie, your #LupusChat Co-host from New York City. My goal is to read 20 new books this year & I’m most looking forward to reading @Danez_Smif’s new poetry book, ‘Homie’ in 2020. https://t.co/Bx90lzCF32 |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: Hello! I’m Tiffany Marie, your #LupusChat Co-host from New York City. My goal is to read 20 new books this year & I’m most looking forward to reading @Danez_Smif’s new poetry book, ‘Homie’ in 2020. https://t.co/Bx90lzCF32 |
| #LupusChat @Lupus_Chat RT @Xtel007: It's tiiiiiiiime! #LupusChat https://t.co/TxvXOlDwQQ |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @SynceNerd_Carli I'll be doing #LupusChat and hosting #NFLCommentary simultaneously. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what book would you like to read in 2020? https://t.co/DQ26RUt0LC |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Hello! I’m Tiffany Marie, your #LupusChat Co-host from New York City. My goal is to read 20 new books this year & I’m most looking forward to reading @Danez_Smif’s new poetry book, ‘Homie’ in 2020. https://t.co/Bx90lzCF32 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Good afternoon everyone. Christele here, Lupus patient since 2007 and co-host of #LupusChat. Currently tweeting from the road, but I am looking forward to starting the Throne of Glass series (recommendation from @TiffanyAndLupus)! https://t.co/I2UeZHWJof |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: Hello! I’m Tiffany Marie, your #LupusChat Co-host from New York City. My goal is to read 20 new books this year & I’m most looking forward to reading @Danez_Smif’s new poetry book, ‘Homie’ in 2020. https://t.co/Bx90lzCF32 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Comencemos nuestra fiesta #LupusChat! Comparta su nombre, de dónde es, un poco sobre usted y qué libro le gustaría leer en 2020? https://t.co/pBcePYEspM |
| #LupusChat @Lupus_Chat RT @Xtel007: Good afternoon everyone. Christele here, Lupus patient since 2007 and co-host of #LupusChat. Currently tweeting from the road, but I am looking forward to starting the Throne of Glass series (recommendation from @TiffanyAndLupus)! https://t.co/I2UeZHWJof |
| Carly by Nature @SynceNerd_Carli Welcome everyone! I'm Carly, Patient Advocate, Science nerd, and Co-Host of #LupusChat. This year I'll be revisiting some of my favorite authors' works. However on my new reads list, next up is How to Cure a Ghost by @fariharoisin and Homie by @Danez_Smif . Cannot wait! https://t.co/uSomwdYRnG |
| Caring For Lupus @CaringForLupus RT @Xtel007: Good afternoon everyone. Christele here, Lupus patient since 2007 and co-host of #LupusChat. Currently tweeting from the road, but I am looking forward to starting the Throne of Glass series (recommendation from @TiffanyAndLupus)! https://t.co/I2UeZHWJof |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Welcome everyone! I'm Carly, Patient Advocate, Science nerd, and Co-Host of #LupusChat. This year I'll be revisiting some of my favorite authors' works. However on my new reads list, next up is How to Cure a Ghost by @fariharoisin and Homie by @Danez_Smif . Cannot wait! https://t.co/uSomwdYRnG |
 | You cant fight the good fight if you're dead @sickysummie Summer from Seattle checking in. Me and my foggy brain are looking forward to Feed by @seananmcguire. I ❤️ library ebooks! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Good afternoon everyone. Christele here, Lupus patient since 2007 and co-host of #LupusChat. Currently tweeting from the road, but I am looking forward to starting the Throne of Glass series (recommendation from @TiffanyAndLupus)! https://t.co/I2UeZHWJof |
| Tiffany ⁷ @TiffanyAndLupus @Xtel007 ahhhhhh! I can't wait for you to start reading it! #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat Raquel from TX! Advocate for human and animal rights living with chronic illness. I want to read Queenie and Just Mercy. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Welcome everyone! I'm Carly, Patient Advocate, Science nerd, and Co-Host of #LupusChat. This year I'll be revisiting some of my favorite authors' works. However on my new reads list, next up is How to Cure a Ghost by @fariharoisin and Homie by @Danez_Smif . Cannot wait! https://t.co/uSomwdYRnG |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Ivey Janette,Albuquerque. Surviving and living with Lupus since 1995. Planning to re-read some Toni Morrison and Alice Walker books in 2020. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: Summer from Seattle checking in. Me and my foggy brain are looking forward to Feed by @seananmcguire. I ❤️ library ebooks! #LupusChat |
| Carly by Nature @SynceNerd_Carli ¡Bienvenidos todos! Soy Carly, defensora de pacientes, nerd científico y coanfitrión de #LupusChat. Volveré a leer algunos libros viejos este año, pero en mi lista de lecturas, para febrero hay Cómo curar un fantasma por @fariharoisin y Homie para @Danez_Smif. ¡No puedo esperar! https://t.co/XWVFXk4HQe |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat Raquel from TX! Advocate for human and animal rights living with chronic illness. I want to read Queenie and Just Mercy. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving and living with Lupus since 1995. Planning to re-read some Toni Morrison and Alice Walker books in 2020. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: Summer from Seattle checking in. Me and my foggy brain are looking forward to Feed by @seananmcguire. I ❤️ library ebooks! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat Raquel from TX! Advocate for human and animal rights living with chronic illness. I want to read Queenie and Just Mercy. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: Good afternoon everyone. Christele here, Lupus patient since 2007 and co-host of #LupusChat. Currently tweeting from the road, but I am looking forward to starting the Throne of Glass series (recommendation from @TiffanyAndLupus)! https://t.co/I2UeZHWJof |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: Welcome everyone! I'm Carly, Patient Advocate, Science nerd, and Co-Host of #LupusChat. This year I'll be revisiting some of my favorite authors' works. However on my new reads list, next up is How to Cure a Ghost by @fariharoisin and Homie by @Danez_Smif . Cannot wait! https://t.co/uSomwdYRnG |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: Welcome everyone! I'm Carly, Patient Advocate, Science nerd, and Co-Host of #LupusChat. This year I'll be revisiting some of my favorite authors' works. However on my new reads list, next up is How to Cure a Ghost by @fariharoisin and Homie by @Danez_Smif . Cannot wait! https://t.co/uSomwdYRnG |
| Friends AgainstLupus @AgainstLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving and living with Lupus since 1995. Planning to re-read some Toni Morrison and Alice Walker books in 2020. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving and living with Lupus since 1995. Planning to re-read some Toni Morrison and Alice Walker books in 2020. #LupusChat |
| Caring For Lupus @CaringForLupus Hi... I'm Elizabeth from NJ, a #LupusChat co-host My twelve year old daughter is a Lupus Warrior 💪. Book..📖 I'm not sure yet 😁 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what book would you like to read in 2020? https://t.co/DQ26RUt0LC |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: ¡Bienvenidos todos! Soy Carly, defensora de pacientes, nerd científico y coanfitrión de #LupusChat. Volveré a leer algunos libros viejos este año, pero en mi lista de lecturas, para febrero hay Cómo curar un fantasma por @fariharoisin y Homie para @Danez_Smif. ¡No puedo esperar! https://t.co/XWVFXk4HQe |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving and living with Lupus since 1995. Planning to re-read some Toni Morrison and Alice Walker books in 2020. #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat Raquel from TX! Advocate for human and animal rights living with chronic illness. I want to read Queenie and Just Mercy. #LupusChat |
| Caring For Lupus @CaringForLupus RT @sickysummie: Summer from Seattle checking in. Me and my foggy brain are looking forward to Feed by @seananmcguire. I ❤️ library ebooks! #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Welcome everyone! I'm Carly, Patient Advocate, Science nerd, and Co-Host of #LupusChat. This year I'll be revisiting some of my favorite authors' works. However on my new reads list, next up is How to Cure a Ghost by @fariharoisin and Homie by @Danez_Smif . Cannot wait! https://t.co/uSomwdYRnG |
| #LupusChat @Lupus_Chat RT @CaringForLupus: Hi... I'm Elizabeth from NJ, a #LupusChat co-host My twelve year old daughter is a Lupus Warrior 💪. Book..📖 I'm not sure yet 😁 |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: Hi... I'm Elizabeth from NJ, a #LupusChat co-host My twelve year old daughter is a Lupus Warrior 💪. Book..📖 I'm not sure yet 😁 |
| Friends AgainstLupus @AgainstLupus RT @CaringForLupus: Hi... I'm Elizabeth from NJ, a #LupusChat co-host My twelve year old daughter is a Lupus Warrior 💪. Book..📖 I'm not sure yet 😁 |
| Friends AgainstLupus @AgainstLupus RT @sickysummie: Summer from Seattle checking in. Me and my foggy brain are looking forward to Feed by @seananmcguire. I ❤️ library ebooks! #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @raquelonpurpose: @Lupus_Chat Raquel from TX! Advocate for human and animal rights living with chronic illness. I want to read Queenie and Just Mercy. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: Hello! I’m Tiffany Marie, your #LupusChat Co-host from New York City. My goal is to read 20 new books this year & I’m most looking forward to reading @Danez_Smif’s new poetry book, ‘Homie’ in 2020. https://t.co/Bx90lzCF32 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: Hi... I'm Elizabeth from NJ, a #LupusChat co-host My twelve year old daughter is a Lupus Warrior 💪. Book..📖 I'm not sure yet 😁 |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: ¡Bienvenidos todos! Soy Carly, defensora de pacientes, nerd científico y coanfitrión de #LupusChat. Volveré a leer algunos libros viejos este año, pero en mi lista de lecturas, para febrero hay Cómo curar un fantasma por @fariharoisin y Homie para @Danez_Smif. ¡No puedo esperar! https://t.co/XWVFXk4HQe |
| Friends AgainstLupus @AgainstLupus RT @SynceNerd_Carli: Welcome everyone! I'm Carly, Patient Advocate, Science nerd, and Co-Host of #LupusChat. This year I'll be revisiting some of my favorite authors' works. However on my new reads list, next up is How to Cure a Ghost by @fariharoisin and Homie by @Danez_Smif . Cannot wait! https://t.co/uSomwdYRnG |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: Good afternoon everyone. Christele here, Lupus patient since 2007 and co-host of #LupusChat. Currently tweeting from the road, but I am looking forward to starting the Throne of Glass series (recommendation from @TiffanyAndLupus)! https://t.co/I2UeZHWJof |
| #LupusChat @Lupus_Chat Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/WVd8fbttTs |
| #LupusChat @Lupus_Chat Is everyone ready? Here comes Question 1! #LupusChat https://t.co/e2nPLWqN0O |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Is everyone ready? Here comes Question 1! #LupusChat https://t.co/e2nPLWqN0O |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Is everyone ready? Here comes Question 1! #LupusChat https://t.co/e2nPLWqN0O |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Hello! I’m Tiffany Marie, your #LupusChat Co-host from New York City. My goal is to read 20 new books this year & I’m most looking forward to reading @Danez_Smif’s new poetry book, ‘Homie’ in 2020. https://t.co/Bx90lzCF32 |
| #LupusChat @Lupus_Chat Q1: Qué métodos utiliza para comunicarse con los médicos o especialistas de su equipo de atención? #LupusChat https://t.co/m4NBgoQCa8 |
| #LupusChat @Lupus_Chat Q1: What methods do you use to contact the doctors or specialists on your care team? #LupusChat https://t.co/PEW8TW6Dcq |
 | Nych (Nuh-Eye-Shhhh) @_iluvnychthings RT @Lupus_Chat: Is everyone ready? Here comes Question 1! #LupusChat https://t.co/e2nPLWqN0O |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1: Q1: What methods do you use to contact the doctors or specialists on your care team? #LupusChat https://t.co/PEW8TW6Dcq |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q1: Q1: What methods do you use to contact the doctors or specialists on your care team? #LupusChat https://t.co/PEW8TW6Dcq |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q1: Q1: What methods do you use to contact the doctors or specialists on your care team? #LupusChat https://t.co/PEW8TW6Dcq |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: What methods do you use to contact the doctors or specialists on your care team? #LupusChat https://t.co/PEW8TW6Dcq |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Qué métodos utiliza para comunicarse con los médicos o especialistas de su equipo de atención? #LupusChat https://t.co/m4NBgoQCa8 |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A1 : Phone calls. #LupusChat |
| Caring For Lupus @CaringForLupus 1. We get in touch with Miah's specialists by using: * Patient portal and writing a message. It also has the option to add an attachment. * Doctor's nurse; when I'm calling the doctor's office, I'm able to talk to his/her nurse. #LupusChat |
| Caring For Lupus @CaringForLupus 1. Nos podemos poner en contacto con los especialistas de Miah usando: * Portal del paciente y escribir un mensaje. También tiene la opción de agregar un archivo adjunto. * Enfermera del doctor; Cuando llamo al consultorio del médico, puedo hablar con su enfermera. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1: To contact the doctors on my care team I usually use my patient portal through MyChart. Some of my specialists I can only reach by calling their office and leaving a message. #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : Phone calls. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. I kind of prefer to talk over the phone. Luckily, I have the direct phone numbers to a few people at my rheumie's office, so I can get a message to her super quickly in an emergency. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : Phone calls. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. I kind of prefer to talk over the phone. Luckily, I have the direct phone numbers to a few people at my rheumie's office, so I can get a message to her super quickly in an emergency. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: To contact the doctors on my care team I usually use my patient portal through MyChart. Some of my specialists I can only reach by calling their office and leaving a message. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: 1. Nos podemos poner en contacto con los especialistas de Miah usando: 1. Nos podemos poner en contacto con los especialistas de Miah usando: * Portal del paciente y escribir un mensaje. También tiene la opción de agregar un archivo adjunto. * Enfermera del doctor; Cuando llamo al consultorio del médico, puedo hablar con su enfermera. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: 1. We get in touch with Miah's specialists by using: * Patient portal and writing a message. It also has the option to add an attachment. * Doctor's nurse; when I'm calling the doctor's office, I'm able to talk to his/her nurse. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. In reality tho, I should try to use the patient portal more. Because although I prefer the immediate-ness (is that a word?) of phone convos, I forget a lot (brain fog), so having things in writing would help. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1: Q1: What methods do you use to contact the doctors or specialists on your care team? #LupusChat https://t.co/PEW8TW6Dcq |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. In reality tho, I should try to use the patient portal more. Because although I prefer the immediate-ness (is that a word?) of phone convos, I forget a lot (brain fog), so having things in writing would help. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A1: A1: To contact the doctors on my care team I usually use my patient portal through MyChart. Some of my specialists I can only reach by calling their office and leaving a message. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1: Para contactar a los médicos de mi equipo de atención, normalmente uso mi portal de pacientes a través de MyChart. Algunos de mis especialistas a los que solo puedo contactar llamando a su oficina y dejando un mensaje. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: Para contactar a los médicos de mi equipo de atención, normalmente uso mi portal de pacientes a través de MyChart. Algunos de mis especialistas a los que solo puedo contactar llamando a su oficina y dejando un mensaje. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A1. Phone or e-mail. I text,call or e-mail my care coordinator. #LupusChat |
 | Rachel F F@#K LUPUS @FKLUPUS A:1 At times I will call, but I mostly use email to communicate. I'm a firm believer in keeping records of communication. #LupusChat https://t.co/Qtre55HcOy |
| You cant fight the good fight if you're dead @sickysummie A1: Almost always I email using mychart and adore the ability to do after hours communication. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A1. Phone or e-mail. I text,call or e-mail my care coordinator. #LupusChat |
| Caring For Lupus @CaringForLupus RT @sickysummie: A1: A1: Almost always I email using mychart and adore the ability to do after hours communication. #LupusChat |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:1 At times I will call, but I mostly use email to communicate. I'm a firm believer in keeping records of communication. #LupusChat https://t.co/Qtre55HcOy |
| Caring For Lupus @CaringForLupus RT @FKLUPUS: A:1 At times I will call, but I mostly use email to communicate. I'm a firm believer in keeping records of communication. #LupusChat https://t.co/Qtre55HcOy |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A1. Phone or e-mail. I text,call or e-mail my care coordinator. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: A1: A1: Almost always I email using mychart and adore the ability to do after hours communication. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: Para contactar a los médicos de mi equipo de atención, normalmente uso mi portal de pacientes a través de MyChart. Algunos de mis especialistas a los que solo puedo contactar llamando a su oficina y dejando un mensaje. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1. In reality tho, I should try to use the patient portal more. Because although I prefer the immediate-ness (is that a word?) of phone convos, I forget a lot (brain fog), so having things in writing would help. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1. I kind of prefer to talk over the phone. Luckily, I have the direct phone numbers to a few people at my rheumie's office, so I can get a message to her super quickly in an emergency. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: To contact the doctors on my care team I usually use my patient portal through MyChart. Some of my specialists I can only reach by calling their office and leaving a message. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. In reality tho, I should try to use the patient portal more. Because although I prefer the immediate-ness (is that a word?) of phone convos, I forget a lot (brain fog), so having things in writing would help. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: 1. We get in touch with Miah's specialists by using: * Patient portal and writing a message. It also has the option to add an attachment. * Doctor's nurse; when I'm calling the doctor's office, I'm able to talk to his/her nurse. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. I kind of prefer to talk over the phone. Luckily, I have the direct phone numbers to a few people at my rheumie's office, so I can get a message to her super quickly in an emergency. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : Phone calls. #LupusChat |
| Nych (Nuh-Eye-Shhhh) @_iluvnychthings Hey I’m Nych👋🏾 I’m from the Boston area. I’m the author or #thematrixofemotions a story about my Lupus journey. I’m looking to read more on health and wellness. Time for another trip to the book store. |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A1. In reality tho, I should try to use the patient portal more. Because although I prefer the immediate-ness (is that a word?) of phone convos, I forget a lot (brain fog), so having things in writing would help. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : Phone calls. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @CaringForLupus: 1. We get in touch with Miah's specialists by using: * Patient portal and writing a message. It also has the option to add an attachment. * Doctor's nurse; when I'm calling the doctor's office, I'm able to talk to his/her nurse. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @sickysummie: A1: A1: Almost always I email using mychart and adore the ability to do after hours communication. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @iveyjanette_207: @Lupus_Chat A1. Phone or e-mail. I text,call or e-mail my care coordinator. #LupusChat |
 | Kate Sattler | Sweet Freeze @katesattler @Lupus_Chat I’m Kate in Portland. I’m a musician, producer, writer. Was diagnosed w lupus 2 years ago. Hoping to read Say Nothing & You Were Born for This. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A1: A1: To contact the doctors on my care team I usually use my patient portal through MyChart. Some of my specialists I can only reach by calling their office and leaving a message. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A1: A1: Almost always I email using mychart and adore the ability to do after hours communication. #LupusChat |
| You cant fight the good fight if you're dead @sickysummie A1: My PCP's office routes mychart messages to specific ppl, so PA requests are fwd to a PA specialist. Super handy! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:1 At times I will call, but I mostly use email to communicate. I'm a firm believer in keeping records of communication. #LupusChat https://t.co/Qtre55HcOy |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Very very smart. Gotta keep receipts, for multiple reasons. #LupusChat |
| Caring For Lupus @CaringForLupus RT @katesattler: @Lupus_Chat I’m Kate in Portland. I’m a musician, producer, writer. Was diagnosed w lupus 2 years ago. Hoping to read Say Nothing & You Were Born for This. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @katesattler: @Lupus_Chat I’m Kate in Portland. I’m a musician, producer, writer. Was diagnosed w lupus 2 years ago. Hoping to read Say Nothing & You Were Born for This. #LupusChat |
| #LupusChat @Lupus_Chat RT @katesattler: @Lupus_Chat I’m Kate in Portland. I’m a musician, producer, writer. Was diagnosed w lupus 2 years ago. Hoping to read Say Nothing & You Were Born for This. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @sickysummie: A1: A1: My PCP's office routes mychart messages to specific ppl, so PA requests are fwd to a PA specialist. Super handy! #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: A1: A1: My PCP's office routes mychart messages to specific ppl, so PA requests are fwd to a PA specialist. Super handy! #LupusChat |
| #LupusChat @Lupus_Chat Parece que hemos utilizado muchas formas diferentes de contactar a los miembros de nuestro equipo de atención. Para la pregunta 2, nos centraremos en los cambios en la forma en que nos comunicamos. #LupusChat https://t.co/yPKmLPFc6S |
| #LupusChat @Lupus_Chat It looks like we’ve used many different ways to contact members of our care team. For Question 2 we’ll focus on changes to the way we communicate. #LupusChat https://t.co/p4w2zFhR4t |
| Friends AgainstLupus @AgainstLupus RT @katesattler: @Lupus_Chat I’m Kate in Portland. I’m a musician, producer, writer. Was diagnosed w lupus 2 years ago. Hoping to read Say Nothing & You Were Born for This. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A1: A1: My PCP's office routes mychart messages to specific ppl, so PA requests are fwd to a PA specialist. Super handy! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: It looks like we’ve used many different ways to contact members of our care team. For Question 2 we’ll focus on changes to the way we communicate. #LupusChat https://t.co/p4w2zFhR4t |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: It looks like we’ve used many different ways to contact members of our care team. For Question 2 we’ll focus on changes to the way we communicate. #LupusChat https://t.co/p4w2zFhR4t |
| #LupusChat @Lupus_Chat Q2: Cómo cree que los avances tecnológicos pueden afectar la comunicación entre médicos y pacientes? #LupusChat https://t.co/T5i04t8BuZ |
| #LupusChat @Lupus_Chat Q2: How do you think advancements in technology can impact communication between physicians and patients? #LupusChat https://t.co/xRgqudRVMs |
| #LupusChat @Lupus_Chat #LupusChat |
| #LupusChat @Lupus_Chat @AngieLupusLife @lisaaromano1 Gentle reminder to add the #LupusChat tag to each of your tweets so we can see them. 💜 |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q2: Q2: How do you think advancements in technology can impact communication between physicians and patients? #LupusChat https://t.co/xRgqudRVMs |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q2: Q2: How do you think advancements in technology can impact communication between physicians and patients? #LupusChat https://t.co/xRgqudRVMs |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A2 : Faster, more efficient? My doctor's office communicates with me through email - they initiate and I respond. I don't really like it. But I get that it helps them keep things coordinated. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A2: I’m really thankful for the technological advancements in healthcare. Tools like MyChart & patient portals create a better & easier way to contact our doctors. It’s helpful to be able to ask questions & possibly avoid an in-person visit. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: How do you think advancements in technology can impact communication between physicians and patients? #LupusChat https://t.co/xRgqudRVMs |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2: Q2: How do you think advancements in technology can impact communication between physicians and patients? #LupusChat https://t.co/xRgqudRVMs |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : Faster, more efficient? My doctor's office communicates with me through email - they initiate and I respond. I don't really like it. But I get that it helps them keep things coordinated. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: Cómo cree que los avances tecnológicos pueden afectar la comunicación entre médicos y pacientes? #LupusChat https://t.co/T5i04t8BuZ |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q2: Q2: How do you think advancements in technology can impact communication between physicians and patients? #LupusChat https://t.co/xRgqudRVMs |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: I’m really thankful for the technological advancements in healthcare. Tools like MyChart & patient portals create a better & easier way to contact our doctors. It’s helpful to be able to ask questions & possibly avoid an in-person visit. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. Advancements in technology really help, in my opinion, because it gives options for communications, especially the ability to see our test results, which aids the in-person conversations during doctor visits. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2. Advancements in technology really help, in my opinion, because it gives options for communications, especially the ability to see our test results, which aids the in-person conversations during doctor visits. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A2. Advancements in technology really help, in my opinion, because it gives options for communications, especially the ability to see our test results, which aids the in-person conversations during doctor visits. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A2: A2: I’m really thankful for the technological advancements in healthcare. Tools like MyChart & patient portals create a better & easier way to contact our doctors. It’s helpful to be able to ask questions & possibly avoid an in-person visit. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : Faster, more efficient? My doctor's office communicates with me through email - they initiate and I respond. I don't really like it. But I get that it helps them keep things coordinated. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A2: Estoy muy agradecido por los avances tecnológicos en salud. Herramientas como MyChart & portales para pacientes crean una mejor y más fácil manera de contactar a nuestros médicos. Es útil poder hacer preguntas y posiblemente evitar una visita en persona. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. I would want the different options to all be available tho. Forcing patients to only use a portal, for example, could be exclusionary, if they are not tech savvy or have access to the tech (or just don't want that method). #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2. Advancements in technology really help, in my opinion, because it gives options for communications, especially the ability to see our test results, which aids the in-person conversations during doctor visits. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A2: A2: I’m really thankful for the technological advancements in healthcare. Tools like MyChart & patient portals create a better & easier way to contact our doctors. It’s helpful to be able to ask questions & possibly avoid an in-person visit. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2: Q2: How do you think advancements in technology can impact communication between physicians and patients? #LupusChat https://t.co/xRgqudRVMs |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A2: A2: Estoy muy agradecido por los avances tecnológicos en salud. Herramientas como MyChart & portales para pacientes crean una mejor y más fácil manera de contactar a nuestros médicos. Es útil poder hacer preguntas y posiblemente evitar una visita en persona. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2. I would want the different options to all be available tho. Forcing patients to only use a portal, for example, could be exclusionary, if they are not tech savvy or have access to the tech (or just don't want that method). #LupusChat |
 | David Lazar, MD MPH @DrDavidLazar Hi #LupusChat I am here following the discussion |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: Estoy muy agradecido por los avances tecnológicos en salud. Herramientas como MyChart & portales para pacientes crean una mejor y más fácil manera de contactar a nuestros médicos. Es útil poder hacer preguntas y posiblemente evitar una visita en persona. #LupusChat |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: Hi #LupusChat I am here following the discussion |
| You cant fight the good fight if you're dead @sickysummie A2: MyChart messages enable direct communication with docs, bypassing phone-based gatekeepers. It's sped up communication plus no more waiting for that important call! #LupusChat |
| #LupusChat @Lupus_Chat Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/evW8ZMHkV5 |
| #LupusChat @Lupus_Chat Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/wYC5WbX9j4 |
| Tiffany ⁷ @TiffanyAndLupus RT @DrDavidLazar: Hi #LupusChat I am here following the discussion |
| #LupusChat @Lupus_Chat RT @sickysummie: A2: A2: MyChart messages enable direct communication with docs, bypassing phone-based gatekeepers. It's sped up communication plus no more waiting for that important call! #LupusChat |
| #LupusChat @Lupus_Chat @DrDavidLazar Welcome back, Dr. Lazar! It’s great to see you at #LupusChat today. We appreciate your shared insights. |
| #LupusChat @Lupus_Chat Con tantos especialistas en nuestro equipo, a menudo puede ser difícil hacer un seguimiento al administrar nuestra atención. Exploremos la composición de nuestro equipo de atención en la pregunta 3. #LupusChat https://t.co/dAzteZiKkH |
| #LupusChat @Lupus_Chat With so many specialists on our team, it can often be difficult to keep track when managing our care. Let’s explore the make-up of our care team in Question 3. #LupusChat https://t.co/SJVGdN48w1 |
| RaquelRoschell @raquelonpurpose RT @Xtel007: A2. I would want the different options to all be available tho. Forcing patients to only use a portal, for example, could be exclusionary, if they are not tech savvy or have access to the tech (or just don't want that method). #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A2. Faster contact with providers and pharmacies. The patient portal was confusing at first,but I'm able to get my lab and x ray results long before my follow-up appointments. Also video chats. #LupusChat |
| You cant fight the good fight if you're dead @sickysummie @bellaproduces So true! Pre-echarts I had a 3 volume paper chart. Now specialists see all my records before I meet them. Plus I have access. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @DrDavidLazar #LupusChat https://t.co/mCUaTUbmvx |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A2. Faster contact with providers and pharmacies. The patient portal was confusing at first,but I'm able to get my lab and x ray results long before my follow-up appointments. Also video chats. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: With so many specialists on our team, it can often be difficult to keep track when managing our care. Let’s explore the make-up of our care team in Question 3. #LupusChat https://t.co/SJVGdN48w1 |
| #LupusChat @Lupus_Chat Q3: Cual médico lidera su atención entre todos sus doctores y cómo se siente acerca de la forma en que se comunican con otros miembros de su equipo de salud? #LupusChat https://t.co/RsTOJMGcK1 |
| #LupusChat @Lupus_Chat Q3: Which kind of physician takes the lead in your care & how do you feel about the way they communicate with other members of your care team? #LupusChat https://t.co/QOzxImya6g |
| Rachel F F@#K LUPUS @FKLUPUS A:2 It can help both parties communicate more efficiently and effectively. Personally, I sometimes get so anxious I forget my questions, even with a list, so I can ask via email and generally get a more concise/succinct explanation or instructions. #Lupuschat https://t.co/znuyDG9nOC |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2. I would want the different options to all be available tho. Forcing patients to only use a portal, for example, could be exclusionary, if they are not tech savvy or have access to the tech (or just don't want that method). #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A2: A2: MyChart messages enable direct communication with docs, bypassing phone-based gatekeepers. It's sped up communication plus no more waiting for that important call! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: With so many specialists on our team, it can often be difficult to keep track when managing our care. Let’s explore the make-up of our care team in Question 3. #LupusChat https://t.co/SJVGdN48w1 |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: With so many specialists on our team, it can often be difficult to keep track when managing our care. Let’s explore the make-up of our care team in Question 3. #LupusChat https://t.co/SJVGdN48w1 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat A2. Faster contact with providers and pharmacies. The patient portal was confusing at first,but I'm able to get my lab and x ray results long before my follow-up appointments. Also video chats. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A2. Faster contact with providers and pharmacies. The patient portal was confusing at first,but I'm able to get my lab and x ray results long before my follow-up appointments. Also video chats. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @iveyjanette_207: @Lupus_Chat A2. Faster contact with providers and pharmacies. The patient portal was confusing at first,but I'm able to get my lab and x ray results long before my follow-up appointments. Also video chats. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: @bellaproduces So true! Pre-echarts I had a 3 volume paper chart. Now specialists see all my records before I meet them. Plus I have access. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @FKLUPUS: A:2 It can help both parties communicate more efficiently and effectively. Personally, I sometimes get so anxious I forget my questions, even with a list, so I can ask via email and generally get a more concise/succinct explanation or instructions. #Lupuschat https://t.co/znuyDG9nOC |
| Nych (Nuh-Eye-Shhhh) @_iluvnychthings A1. I like communicating through the email system because you get answers to your questions quicker. #lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q3: Q3: Which kind of physician takes the lead in your care & how do you feel about the way they communicate with other members of your care team? #LupusChat https://t.co/QOzxImya6g |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q3: Q3: Which kind of physician takes the lead in your care & how do you feel about the way they communicate with other members of your care team? #LupusChat https://t.co/QOzxImya6g |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q3: Q3: Which kind of physician takes the lead in your care & how do you feel about the way they communicate with other members of your care team? #LupusChat https://t.co/QOzxImya6g |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q3: Q3: Which kind of physician takes the lead in your care & how do you feel about the way they communicate with other members of your care team? #LupusChat https://t.co/QOzxImya6g |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q3: Q3: Which kind of physician takes the lead in your care & how do you feel about the way they communicate with other members of your care team? #LupusChat https://t.co/QOzxImya6g |
| #LupusChat @Lupus_Chat RT @_iluvnychthings: A1. I like communicating through the email system because you get answers to your questions quicker. #lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. My rheumie takes the lead, although I still have to go through my PCP for referrals and prior authorization stuff. But my PCP and other specialists are actually people recommended by her (rheum), who she knows well and have a good working relationship with. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: My rheumatologist is the physician that usually takes the lead in managing my care. She stays in steady communication with my kidney doctor. I wish my general physician communicated more with me and my specialists. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. Because she knows my other specialists, communication had been pretty good when I needed services or treatments, etc. It also help that they are all in the same network (except for my dentist). #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: @bellaproduces So true! Pre-echarts I had a 3 volume paper chart. Now specialists see all my records before I meet them. Plus I have access. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @_iluvnychthings: A1. I like communicating through the email system because you get answers to your questions quicker. #lupuschat |
| Friends AgainstLupus @AgainstLupus RT @_iluvnychthings: A1. I like communicating through the email system because you get answers to your questions quicker. #lupuschat |
| Friends AgainstLupus @AgainstLupus RT @sickysummie: @bellaproduces So true! Pre-echarts I had a 3 volume paper chart. Now specialists see all my records before I meet them. Plus I have access. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: Mi reumatólogo es el médico que generalmente toma la iniciativa en el manejo de mi atención. Ella se mantiene en constante comunicación con mi médico de riñón. Deseo que mi médico general se comunique más conmigo y con mis especialistas. #LupusChat |
| Caring For Lupus @CaringForLupus A2 Before Miah's diagnosis we didn't have much communication with our regular doctors besides our annual check up. I'm very happy that technology is changing and facilitating how patients can interact and reach our healthcare team. #LupusChat |
 | supergranny 🌈✌🇺🇸 @DeAnne41358292 RT @sickysummie: Summer from Seattle checking in. Me and my foggy brain are looking forward to Feed by @seananmcguire. I ❤️ library ebooks! #LupusChat |
| Caring For Lupus @CaringForLupus A2 Antes del diagnóstico de Miah no teníamos mucha comunicación con nuestros médicos además de nuestro chequeo anual. Estoy muy contenta que la tecnología esté cambiando y facilitando cómo los pacientes pueden interactuar con nuestro equipo de atención médica. #LupusChat |
| Caring For Lupus @CaringForLupus A2 Information technology must be implemented in ways that preserve and uplift relationships in care #LupusChat |
| Caring For Lupus @CaringForLupus A2 La tecnología de la información debe implementarse de manera que conserve y eleve las relaciones en la atención medica #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A3: A3: My rheumatologist is the physician that usually takes the lead in managing my care. She stays in steady communication with my kidney doctor. I wish my general physician communicated more with me and my specialists. #LupusChat |
| Caring For Lupus @CaringForLupus A2 Doctors and patients have nowadays unprecedented access to health care information. Patients have become more active participants in the decision making process #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A3. My rheumie takes the lead, although I still have to go through my PCP for referrals and prior authorization stuff. But my PCP and other specialists are actually people recommended by her (rheum), who she knows well and have a good working relationship with. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: My rheumatologist is the physician that usually takes the lead in managing my care. She stays in steady communication with my kidney doctor. I wish my general physician communicated more with me and my specialists. #LupusChat |
| Caring For Lupus @CaringForLupus A2 Los médicos y pacientes tienen hoy en día un acceso sin precedentes a la información de atención médica. Los pacientes se han convertido en participantes más activos en el proceso de toma de decisiones. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A3. Because she knows my other specialists, communication had been pretty good when I needed services or treatments, etc. It also help that they are all in the same network (except for my dentist). #LupusChat |
| You cant fight the good fight if you're dead @sickysummie A3: My PCP's in charge and checks my labs and chart notes. She also relies on me to keep her updated. But I'm only on hydroxychloroquine for AI stuffs. #LupusChat |
| Caring For Lupus @CaringForLupus A2 Synchronous (real-time) communication, using live videoconferencing is one of the latest addition. Online doctor consultation are rapidly gaining popularity these days as more health insurers offer telemedicine services to help cut costs #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 Before Miah's diagnosis we didn't have much communication with our regular doctors besides our annual check up. I'm very happy that technology is changing and facilitating how patients can interact and reach our healthcare team. #LupusChat |
| Nych (Nuh-Eye-Shhhh) @_iluvnychthings A2. I think technological advances are great but I would still prefer a way to see my doctor rather than communicate through email because words and tone can be misconstrued. Skype sessions would be cool. Sometimes I don’t even feel strong enough to make it to the Dr. #lupuschat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: Mi reumatólogo es el médico que generalmente toma la iniciativa en el manejo de mi atención. Ella se mantiene en constante comunicación con mi médico de riñón. Deseo que mi médico general se comunique más conmigo y con mis especialistas. #LupusChat |
| Caring For Lupus @CaringForLupus A2 La comunicación en tiempo real mediante videoconferencia en vivo, es una de las últimas incorporaciones. La consulta médica en línea está ganando popularidad rápidamente en la actualidad a medida que más aseguradoras de salud ofrecen servicios #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 Antes del diagnóstico de Miah no teníamos mucha comunicación con nuestros médicos además de nuestro chequeo anual. Estoy muy contenta que la tecnología esté cambiando y facilitando cómo los pacientes pueden interactuar con nuestro equipo de atención médica. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: A3: A3: My PCP's in charge and checks my labs and chart notes. She also relies on me to keep her updated. But I'm only on hydroxychloroquine for AI stuffs. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 Doctors and patients have nowadays unprecedented access to health care information. Patients have become more active participants in the decision making process #LupusChat |
| Caring For Lupus @CaringForLupus RT @_iluvnychthings: A2. I think technological advances are great but I would still prefer a way to see my doctor rather than communicate through email because words and tone can be misconstrued. Skype sessions would be cool. Sometimes I don’t even feel strong enough to make it to the Dr. #lupuschat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A3. My kidney doctor. He immediately gets in touch with rheumatology,cardiology and my PCP after each appointment. He's been my kidney doctor for over 10 years and is familiar with my lupus issues. Especially after my insurance changed and I had to change doctors. #LupusChat |
| Caring For Lupus @CaringForLupus RT @sickysummie: A3: A3: My PCP's in charge and checks my labs and chart notes. She also relies on me to keep her updated. But I'm only on hydroxychloroquine for AI stuffs. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: Mi reumatólogo es el médico que generalmente toma la iniciativa en el manejo de mi atención. Ella se mantiene en constante comunicación con mi médico de riñón. Deseo que mi médico general se comunique más conmigo y con mis especialistas. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A3. Because she knows my other specialists, communication had been pretty good when I needed services or treatments, etc. It also help that they are all in the same network (except for my dentist). #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: My rheumatologist is the physician that usually takes the lead in managing my care. She stays in steady communication with my kidney doctor. I wish my general physician communicated more with me and my specialists. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A3. My rheumie takes the lead, although I still have to go through my PCP for referrals and prior authorization stuff. But my PCP and other specialists are actually people recommended by her (rheum), who she knows well and have a good working relationship with. #LupusChat |
| Caring For Lupus @CaringForLupus RT @_iluvnychthings: A1. I like communicating through the email system because you get answers to your questions quicker. #lupuschat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: Which kind of physician takes the lead in your care & how do you feel about the way they communicate with other members of your care team? #LupusChat https://t.co/QOzxImya6g |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: Cual médico lidera su atención entre todos sus doctores y cómo se siente acerca de la forma en que se comunican con otros miembros de su equipo de salud? #LupusChat https://t.co/RsTOJMGcK1 |
| Caring For Lupus @CaringForLupus RT @sickysummie: @bellaproduces So true! Pre-echarts I had a 3 volume paper chart. Now specialists see all my records before I meet them. Plus I have access. #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A2. Faster contact with providers and pharmacies. The patient portal was confusing at first,but I'm able to get my lab and x ray results long before my follow-up appointments. Also video chats. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/wYC5WbX9j4 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/evW8ZMHkV5 |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A3 : Arthritis doc/rheumatologist. It's fine. It all seems to get done pretty smoothly. #LupusChat |
| Caring For Lupus @CaringForLupus RT @sickysummie: A2: A2: MyChart messages enable direct communication with docs, bypassing phone-based gatekeepers. It's sped up communication plus no more waiting for that important call! #LupusChat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: Hi #LupusChat I am here following the discussion |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2. I would want the different options to all be available tho. Forcing patients to only use a portal, for example, could be exclusionary, if they are not tech savvy or have access to the tech (or just don't want that method). #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2: A2: Estoy muy agradecido por los avances tecnológicos en salud. Herramientas como MyChart & portales para pacientes crean una mejor y más fácil manera de contactar a nuestros médicos. Es útil poder hacer preguntas y posiblemente evitar una visita en persona. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2. Advancements in technology really help, in my opinion, because it gives options for communications, especially the ability to see our test results, which aids the in-person conversations during doctor visits. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2: A2: I’m really thankful for the technological advancements in healthcare. Tools like MyChart & patient portals create a better & easier way to contact our doctors. It’s helpful to be able to ask questions & possibly avoid an in-person visit. #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : Faster, more efficient? My doctor's office communicates with me through email - they initiate and I respond. I don't really like it. But I get that it helps them keep things coordinated. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @_iluvnychthings I hope telemedicine gains more traction in the coming years (and is accessible to patients like us). #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Arthritis doc/rheumatologist. It's fine. It all seems to get done pretty smoothly. #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A3. My kidney doctor. He immediately gets in touch with rheumatology,cardiology and my PCP after each appointment. He's been my kidney doctor for over 10 years and is familiar with my lupus issues. Especially after my insurance changed and I had to change doctors. #LupusChat |
| Caring For Lupus @CaringForLupus A3 Miah's Rheumatologist is the one who takes the lead. Almost all her doctors are under the same hospital network, and this facilitates the labwork information between doctors and treatments. #LupusChat |
| Caring For Lupus @CaringForLupus A3 El reumatólogo de Miah es quien toma la iniciativa. Casi todos sus médicos están bajo la misma red de hospitales, y esto facilita la información del trabajo de laboratorio entre médicos y tratamientos. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus @bellaproduces I can relate. There have been times when I avoided an ER visit or was told to go to the ER thanks to communication with my Rheumatologist through MyChart. It’s made it easier to stay on top of my health management. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 Synchronous (real-time) communication, using live videoconferencing is one of the latest addition. Online doctor consultation are rapidly gaining popularity these days as more health insurers offer telemedicine services to help cut costs #LupusChat |
| #LupusChat @Lupus_Chat RT @_iluvnychthings: A2. I think technological advances are great but I would still prefer a way to see my doctor rather than communicate through email because words and tone can be misconstrued. Skype sessions would be cool. Sometimes I don’t even feel strong enough to make it to the Dr. #lupuschat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Arthritis doc/rheumatologist. It's fine. It all seems to get done pretty smoothly. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A3. My kidney doctor. He immediately gets in touch with rheumatology,cardiology and my PCP after each appointment. He's been my kidney doctor for over 10 years and is familiar with my lupus issues. Especially after my insurance changed and I had to change doctors. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 La comunicación en tiempo real mediante videoconferencia en vivo, es una de las últimas incorporaciones. La consulta médica en línea está ganando popularidad rápidamente en la actualidad a medida que más aseguradoras de salud ofrecen servicios #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: Aside from myself, my Rheumatologist runs point on my care. While I do have a Primary Care Physician, I see my Rheumatologist more often so it just makes more sense. My Nephrologist is second in command. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: @_iluvnychthings I hope telemedicine gains more traction in the coming years (and is accessible to patients like us). #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3 Miah's Rheumatologist is the one who takes the lead. Almost all her doctors are under the same hospital network, and this facilitates the labwork information between doctors and treatments. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: @bellaproduces I can relate. There have been times when I avoided an ER visit or was told to go to the ER thanks to communication with my Rheumatologist through MyChart. It’s made it easier to stay on top of my health management. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Aside from myself, my Rheumatologist runs point on my care. While I do have a Primary Care Physician, I see my Rheumatologist more often so it just makes more sense. My Nephrologist is second in command. #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:3 My Rheumy is lead. He's new since my last one refused to work with anyone. They really didn't play well with others. 🙄This new one tried to touch base with my specialists and referred me to other needed specialists immediately. He also calls me personally. Love it #LupusChat https://t.co/xoy6tUxRUm |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: @bellaproduces I can relate. There have been times when I avoided an ER visit or was told to go to the ER thanks to communication with my Rheumatologist through MyChart. It’s made it easier to stay on top of my health management. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A3 Miah's Rheumatologist is the one who takes the lead. Almost all her doctors are under the same hospital network, and this facilitates the labwork information between doctors and treatments. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: Aparte de mí mismo, mi reumatólogo se ocupa de mí. Si bien tengo un médico de atención primaria, veo a mi reumatólogo con más frecuencia, por lo que tiene más sentido. Mi nefrólogo es el segundo al mando. #LupusChat |
| #LupusChat @Lupus_Chat La comunicación efectiva es primordial para mantener una buena calidad de atención durante todo el año. Para la Pregunta 4, examinaremos cómo mantener actualizados a todos los miembros del equipo sobre nuestra atención. #LupusChat https://t.co/Y0LkGY2OAX |
| #LupusChat @Lupus_Chat Effective communication is paramount in maintaining good quality of care throughout the year. For Question 4, we’ll examine how to keep all team members updated on our care. #LupusChat https://t.co/EUSGkgiLbZ |
| Tiffany ⁷ @TiffanyAndLupus A2: I wish telemedicine was an integrated part of the mainstream healthcare system. Especially or people with mobility issues and chronic conditions. #LupusChat |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:3 My Rheumy is lead. He's new since my last one refused to work with anyone. They really didn't play well with others. 🙄This new one tried to touch base with my specialists and referred me to other needed specialists immediately. He also calls me personally. Love it #LupusChat https://t.co/xoy6tUxRUm |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: I wish telemedicine was an integrated part of the mainstream healthcare system. Especially or people with mobility issues and chronic conditions. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Effective communication is paramount in maintaining good quality of care throughout the year. For Question 4, we’ll examine how to keep all team members updated on our care. #LupusChat https://t.co/EUSGkgiLbZ |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A3 Miah's Rheumatologist is the one who takes the lead. Almost all her doctors are under the same hospital network, and this facilitates the labwork information between doctors and treatments. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Aparte de mí mismo, mi reumatólogo se ocupa de mí. Si bien tengo un médico de atención primaria, veo a mi reumatólogo con más frecuencia, por lo que tiene más sentido. Mi nefrólogo es el segundo al mando. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A3. My kidney doctor. He immediately gets in touch with rheumatology,cardiology and my PCP after each appointment. He's been my kidney doctor for over 10 years and is familiar with my lupus issues. Especially after my insurance changed and I had to change doctors. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @FKLUPUS That is so awesome! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Arthritis doc/rheumatologist. It's fine. It all seems to get done pretty smoothly. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: @_iluvnychthings I hope telemedicine gains more traction in the coming years (and is accessible to patients like us). #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: Aside from myself, my Rheumatologist runs point on my care. While I do have a Primary Care Physician, I see my Rheumatologist more often so it just makes more sense. My Nephrologist is second in command. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2: A2: I wish telemedicine was an integrated part of the mainstream healthcare system. Especially or people with mobility issues and chronic conditions. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: Aparte de mí mismo, mi reumatólogo se ocupa de mí. Si bien tengo un médico de atención primaria, veo a mi reumatólogo con más frecuencia, por lo que tiene más sentido. Mi nefrólogo es el segundo al mando. #LupusChat |
| Caring For Lupus @CaringForLupus RT @FKLUPUS: A:3 My Rheumy is lead. He's new since my last one refused to work with anyone. They really didn't play well with others. 🙄This new one tried to touch base with my specialists and referred me to other needed specialists immediately. He also calls me personally. Love it #LupusChat https://t.co/xoy6tUxRUm |
| Friends AgainstLupus @AgainstLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : Faster, more efficient? My doctor's office communicates with me through email - they initiate and I respond. I don't really like it. But I get that it helps them keep things coordinated. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Effective communication is paramount in maintaining good quality of care throughout the year. For Question 4, we’ll examine how to keep all team members updated on our care. #LupusChat https://t.co/EUSGkgiLbZ |
| #LupusChat @Lupus_Chat Q4: How can we make sure that our current or new doctors are aware of changes to our medication list? #LupusChat https://t.co/y45NDPGAwo |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Effective communication is paramount in maintaining good quality of care throughout the year. For Question 4, we’ll examine how to keep all team members updated on our care. #LupusChat https://t.co/EUSGkgiLbZ |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4: Q4: How can we make sure that our current or new doctors are aware of changes to our medication list? #LupusChat https://t.co/y45NDPGAwo |
| Caring For Lupus @CaringForLupus A4 Almost all our doctors are part of the same hospital network. And I also keep a list of medicine that Miah has been prescribed in my phone. I think it is easier for the doctor to see it listed in one picture #LupusChat |
| Caring For Lupus @CaringForLupus A4 Casi todos nuestros médicos forman parte de la misma red de hospitales. Y también mantengo una lista de medicamentos que han recetaron a Miah en mi teléfono. Creo que es más fácil para el médico verlo en una imagen. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A4 Casi todos nuestros médicos forman parte de la misma red de hospitales. Y también mantengo una lista de medicamentos que han recetaron a Miah en mi teléfono. Creo que es más fácil para el médico verlo en una imagen. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A4 Almost all our doctors are part of the same hospital network. And I also keep a list of medicine that Miah has been prescribed in my phone. I think it is easier for the doctor to see it listed in one picture #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q4: Q4: How can we make sure that our current or new doctors are aware of changes to our medication list? #LupusChat https://t.co/y45NDPGAwo |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q4: Q4: How can we make sure that our current or new doctors are aware of changes to our medication list? #LupusChat https://t.co/y45NDPGAwo |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q4: Q4: How can we make sure that our current or new doctors are aware of changes to our medication list? #LupusChat https://t.co/y45NDPGAwo |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A2: A2: I wish telemedicine was an integrated part of the mainstream healthcare system. Especially or people with mobility issues and chronic conditions. #LupusChat |
| Kate Sattler | Sweet Freeze @katesattler @Lupus_Chat A3: for the most part my rheumy coordinates which is great! Bc I have discoid too I think she assumes my derm is handling that and doesn’t want to overstep. My derm is less proactive though and I haven’t been making my derm appts. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 Almost all our doctors are part of the same hospital network. And I also keep a list of medicine that Miah has been prescribed in my phone. I think it is easier for the doctor to see it listed in one picture #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @CaringForLupus: A4 Almost all our doctors are part of the same hospital network. And I also keep a list of medicine that Miah has been prescribed in my phone. I think it is easier for the doctor to see it listed in one picture #LupusChat |
| #LupusChat @Lupus_Chat RT @katesattler: @Lupus_Chat A3: @Lupus_Chat A3: for the most part my rheumy coordinates which is great! Bc I have discoid too I think she assumes my derm is handling that and doesn’t want to overstep. My derm is less proactive though and I haven’t been making my derm appts. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A4: We should let our doctors know if a new specialist has prescribed something new or if we’re no longer on a different medication during our assessment. I usually tell mines when they send my new scripts to the pharmacy. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: We should let our doctors know if a new specialist has prescribed something new or if we’re no longer on a different medication during our assessment. I usually tell mines when they send my new scripts to the pharmacy. #LupusChat |
| Kate Sattler | Sweet Freeze @katesattler @Lupus_Chat This is a good reminder that I should discuss this with both doctors so they’re in sync - and I follow through! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4: Q4: How can we make sure that our current or new doctors are aware of changes to our medication list? #LupusChat https://t.co/y45NDPGAwo |
| Tiffany ⁷ @TiffanyAndLupus RT @katesattler: @Lupus_Chat A3: @Lupus_Chat A3: for the most part my rheumy coordinates which is great! Bc I have discoid too I think she assumes my derm is handling that and doesn’t want to overstep. My derm is less proactive though and I haven’t been making my derm appts. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @katesattler: @Lupus_Chat A3: @Lupus_Chat A3: for the most part my rheumy coordinates which is great! Bc I have discoid too I think she assumes my derm is handling that and doesn’t want to overstep. My derm is less proactive though and I haven’t been making my derm appts. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q4: Q4: How can we make sure that our current or new doctors are aware of changes to our medication list? #LupusChat https://t.co/y45NDPGAwo |
 | realtor extraordinaire @AnnaEThacker RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what book would you like to read in 2020? https://t.co/DQ26RUt0LC |
| #LupusChat @Lupus_Chat RT @katesattler: @Lupus_Chat This is a good reminder that I should discuss this with both doctors so they’re in sync - and I follow through! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A4: Debemos informar a nuestros médicos si un nuevo especialista ha prescrito algo nuevo o si ya no estamos tomando un medicamento diferente durante nuestra evaluación. Normalmente le digo a las minas cuando envían mis nuevos guiones a la farmacia. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. Because my doctors are in the same network, they have access to my med list, and periodically will ask me as well, to ensure everything is up to date. They also have access to each other's notes, which is great, because I may forget an important detail. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: Debemos informar a nuestros médicos si un nuevo especialista ha prescrito algo nuevo o si ya no estamos tomando un medicamento diferente durante nuestra evaluación. Normalmente le digo a las minas cuando envían mis nuevos guiones a la farmacia. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. Because my doctors are in the same network, they have access to my med list, and periodically will ask me as well, to ensure everything is up to date. They also have access to each other's notes, which is great, because I may forget an important detail. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. Before, I used to complain to my rheumie and she suggested printing a copy of my med list to have on me and present if needed. The idea of docs being able to share not only med list, but also notes, observations, recommendations is so great. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. Because my doctors are in the same network, they have access to my med list, and periodically will ask me as well, to ensure everything is up to date. They also have access to each other's notes, which is great, because I may forget an important detail. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A4. Before, I used to complain to my rheumie and she suggested printing a copy of my med list to have on me and present if needed. The idea of docs being able to share not only med list, but also notes, observations, recommendations is so great. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A4. Because my doctors are in the same network, they have access to my med list, and periodically will ask me as well, to ensure everything is up to date. They also have access to each other's notes, which is great, because I may forget an important detail. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: Debemos informar a nuestros médicos si un nuevo especialista ha prescrito algo nuevo o si ya no estamos tomando un medicamento diferente durante nuestra evaluación. Normalmente le digo a las minas cuando envían mis nuevos guiones a la farmacia. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A4: A4: Debemos informar a nuestros médicos si un nuevo especialista ha prescrito algo nuevo o si ya no estamos tomando un medicamento diferente durante nuestra evaluación. Normalmente le digo a las minas cuando envían mis nuevos guiones a la farmacia. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A4: A4: We should let our doctors know if a new specialist has prescribed something new or if we’re no longer on a different medication during our assessment. I usually tell mines when they send my new scripts to the pharmacy. #LupusChat |
| Caring For Lupus @CaringForLupus RT @katesattler: @Lupus_Chat This is a good reminder that I should discuss this with both doctors so they’re in sync - and I follow through! #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A4. Because my doctors are in the same network, they have access to my med list, and periodically will ask me as well, to ensure everything is up to date. They also have access to each other's notes, which is great, because I may forget an important detail. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: We should let our doctors know if a new specialist has prescribed something new or if we’re no longer on a different medication during our assessment. I usually tell mines when they send my new scripts to the pharmacy. #LupusChat |
| Caring For Lupus @CaringForLupus RT @katesattler: @Lupus_Chat A3: @Lupus_Chat A3: for the most part my rheumy coordinates which is great! Bc I have discoid too I think she assumes my derm is handling that and doesn’t want to overstep. My derm is less proactive though and I haven’t been making my derm appts. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. Before, I used to complain to my rheumie and she suggested printing a copy of my med list to have on me and present if needed. The idea of docs being able to share not only med list, but also notes, observations, recommendations is so great. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. Before, I used to complain to my rheumie and she suggested printing a copy of my med list to have on me and present if needed. The idea of docs being able to share not only med list, but also notes, observations, recommendations is so great. #LupusChat |
| You cant fight the good fight if you're dead @sickysummie A4: My med list is visible to my whole team and it's checked every single visit. Even if they checked it yesterday. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: A4: A4: My med list is visible to my whole team and it's checked every single visit. Even if they checked it yesterday. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A4: A4: My med list is visible to my whole team and it's checked every single visit. Even if they checked it yesterday. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4: Q4: How can we make sure that our current or new doctors are aware of changes to our medication list? #LupusChat https://t.co/y45NDPGAwo |
| Friends AgainstLupus @AgainstLupus RT @sickysummie: A4: A4: My med list is visible to my whole team and it's checked every single visit. Even if they checked it yesterday. #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:4 I always keep a list of current meds on me via a card my doctor's office hands out as well as on my phone. I hand the staff either one to update. I also have the ability to update online and do so when necessary. #LupusChat https://t.co/AwCsPyOXsq |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:4 I always keep a list of current meds on me via a card my doctor's office hands out as well as on my phone. I hand the staff either one to update. I also have the ability to update online and do so when necessary. #LupusChat https://t.co/AwCsPyOXsq |
| You cant fight the good fight if you're dead @sickysummie @Xtel007 Before echart I had a paper list that I filled in and updated before every appt. #LupusChat |
| Carly by Nature @SynceNerd_Carli A4: All my physicians are apart of the same hospital network. They each tend to review my file prior to or at the start of our consult. They have access to all notes and changes. #LupusChat |
| #LupusChat @Lupus_Chat Es importante que todos los miembros de nuestro equipo de atención sean éticos, empáticos e invertidos en nuestro bienestar. Para la pregunta 5, analicemos qué sucede cuando este NO es el caso. #LupusChat https://t.co/EdUwDNHhRw |
| #LupusChat @Lupus_Chat It’s important that all members of our care team are ethical, empathetic, and invested in our well being. For Question 5, let’s analyze what happens when this is NOT the case. #LupusChat https://t.co/KEre6X35O0 |
| #LupusChat @Lupus_Chat #LupusChat via @DrDavidLazar (A3) |
 | Lucy chen @aktg868 RT @TiffanyAndLupus: A4: A4: We should let our doctors know if a new specialist has prescribed something new or if we’re no longer on a different medication during our assessment. I usually tell mines when they send my new scripts to the pharmacy. #LupusChat |
| Carly by Nature @SynceNerd_Carli A4: Todos mis médicos están separados de la misma red de hospitales. Cada uno tiende a revisar mi archivo antes o al comienzo de nuestra consulta. Tienen acceso a todas las notas y cambios. #LupusChat |
| #LupusChat @Lupus_Chat Q5: Siente que alguna vez a experimentado algún tipo de discriminación al hablar con su médico? Si es así, cómo usted lo manejo? #LupusChat https://t.co/YsKcHzMBFi |
| #LupusChat @Lupus_Chat Q5: Do you feel like you’ve ever experienced some type of discrimination while speaking with your doctor? If so, how did you address it? #LupusChat https://t.co/kwhPdnnsQ1 |
| #LupusChat @Lupus_Chat #LupusChat via @ThacketAnna |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A4. I always inform my doctors at each visit. They also have everything listed on the portals. That came in handy when I had to go to the ER and Presbyterian had it via MyChart. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: All my physicians are apart of the same hospital network. They each tend to review my file prior to or at the start of our consult. They have access to all notes and changes. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: @Xtel007 Before echart I had a paper list that I filled in and updated before every appt. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: It’s important that all members of our care team are ethical, empathetic, and invested in our well being. For Question 5, let’s analyze what happens when this is NOT the case. #LupusChat https://t.co/KEre6X35O0 |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q5: Q5: Do you feel like you’ve ever experienced some type of discrimination while speaking with your doctor? If so, how did you address it? #LupusChat https://t.co/kwhPdnnsQ1 |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/wYC5WbX9j4 |
| Carly by Nature @SynceNerd_Carli A4: I also inform them verbally or via email of any changes. It helps to keep us all on the same page. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A4. I always inform my doctors at each visit. They also have everything listed on the portals. That came in handy when I had to go to the ER and Presbyterian had it via MyChart. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @FKLUPUS: A:4 I always keep a list of current meds on me via a card my doctor's office hands out as well as on my phone. I hand the staff either one to update. I also have the ability to update online and do so when necessary. #LupusChat https://t.co/AwCsPyOXsq |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:4 I always keep a list of current meds on me via a card my doctor's office hands out as well as on my phone. I hand the staff either one to update. I also have the ability to update online and do so when necessary. #LupusChat https://t.co/AwCsPyOXsq |
| Friends AgainstLupus @AgainstLupus RT @FKLUPUS: A:4 I always keep a list of current meds on me via a card my doctor's office hands out as well as on my phone. I hand the staff either one to update. I also have the ability to update online and do so when necessary. #LupusChat https://t.co/AwCsPyOXsq |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: It’s important that all members of our care team are ethical, empathetic, and invested in our well being. For Question 5, let’s analyze what happens when this is NOT the case. #LupusChat https://t.co/KEre6X35O0 |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: It’s important that all members of our care team are ethical, empathetic, and invested in our well being. For Question 5, let’s analyze what happens when this is NOT the case. #LupusChat https://t.co/KEre6X35O0 |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: All my physicians are apart of the same hospital network. They each tend to review my file prior to or at the start of our consult. They have access to all notes and changes. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @SynceNerd_Carli: A4: A4: All my physicians are apart of the same hospital network. They each tend to review my file prior to or at the start of our consult. They have access to all notes and changes. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Es importante que todos los miembros de nuestro equipo de atención sean éticos, empáticos e invertidos en nuestro bienestar. Para la pregunta 5, analicemos qué sucede cuando este NO es el caso. #LupusChat https://t.co/EdUwDNHhRw |
| Nych (Nuh-Eye-Shhhh) @_iluvnychthings A3. My Rheumatologist takes the lead. she could do better with communicating with my other doctors. My PCP does a great job keeping in contact with everyone involved in my care. It would be nice if there was a universal system for all drs and specialist to communicate #lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: Todos mis médicos están separados de la misma red de hospitales. Cada uno tiende a revisar mi archivo antes o al comienzo de nuestra consulta. Tienen acceso a todas las notas y cambios. #LupusChat |
| Carly by Nature @SynceNerd_Carli A4: También les informo verbalmente o por correo electrónico de cualquier cambio. Ayuda a mantenernos a todos en la misma página. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q5: Q5: Do you feel like you’ve ever experienced some type of discrimination while speaking with your doctor? If so, how did you address it? #LupusChat https://t.co/kwhPdnnsQ1 |
| Tiffany ⁷ @TiffanyAndLupus A5: On the several occasions that I’ve discussed the level of pain I’m both living with & experiencing I’ve been met with discrimination in the form of disbelief, nonchalance, and a reluctance to properly treat my pain. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q5: Q5: Do you feel like you’ve ever experienced some type of discrimination while speaking with your doctor? If so, how did you address it? #LupusChat https://t.co/kwhPdnnsQ1 |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q5: Q5: Siente que alguna vez a experimentado algún tipo de discriminación al hablar con su médico? Si es así, cómo usted lo manejo? #LupusChat https://t.co/YsKcHzMBFi |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A4. I always inform my doctors at each visit. They also have everything listed on the portals. That came in handy when I had to go to the ER and Presbyterian had it via MyChart. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: @Xtel007 Before echart I had a paper list that I filled in and updated before every appt. #LupusChat |
| You cant fight the good fight if you're dead @sickysummie A5: Yes. I've been seen as a malingerer pretty often. I filed a complaint about the last rheumy, who said "it's mainly psychiatric" then didn't give a psych referral. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. I can explain and speak for myself and make the information for personable and in context, but it's very reassuring that the members of my care team are connected in that way. Technology for the win. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q5: Q5: Do you feel like you’ve ever experienced some type of discrimination while speaking with your doctor? If so, how did you address it? #LupusChat https://t.co/kwhPdnnsQ1 |
| Tiffany ⁷ @TiffanyAndLupus A5: I’ve burst into tears trying to maintain my composure and “convince” physicians that my pain is real -- while feeling completely dehumanized. Being a Black woman is very difficult in medical settings trying to get my pain addressed and treated. #LupusChat |
| #LupusChat @Lupus_Chat RT @_iluvnychthings: A3. My Rheumatologist takes the lead. she could do better with communicating with my other doctors. My PCP does a great job keeping in contact with everyone involved in my care. It would be nice if there was a universal system for all drs and specialist to communicate #lupuschat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: I also inform them verbally or via email of any changes. It helps to keep us all on the same page. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: On the several occasions that I’ve discussed the level of pain I’m both living with & experiencing I’ve been met with discrimination in the form of disbelief, nonchalance, and a reluctance to properly treat my pain. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: A5: A5: Yes. I've been seen as a malingerer pretty often. I filed a complaint about the last rheumy, who said "it's mainly psychiatric" then didn't give a psych referral. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. I can explain and speak for myself and make the information for personable and in context, but it's very reassuring that the members of my care team are connected in that way. Technology for the win. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: I’ve burst into tears trying to maintain my composure and “convince” physicians that my pain is real -- while feeling completely dehumanized. Being a Black woman is very difficult in medical settings trying to get my pain addressed and treated. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @_iluvnychthings Oh girl do that! It means basically videochatting with your docs instead of an in-person visit. It's very very new, but I hope it will become more common. #LupusChat |
| Nych (Nuh-Eye-Shhhh) @_iluvnychthings A4. This is really something the patient should communicate if they are changing physicians other wise the doctor should know...#LupusChat |
| Carly by Nature @SynceNerd_Carli A5: As a Black Woman, I have experience discrimination quite often. Most notably when it comes to my pain levels. The data shows we are believed less than our white male counterparts. Definitely my lived experience. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: He estallado en lágrimas tratando de mantener mi compostura y "convencer" a los médicos de que mi dolor es real, mientras me siento completamente deshumanizado. Ser una mujer negra es muy difícil en entornos médicos tratando de que mi dolor sea abordado y tratado. #LupusChat |
 | Grisel Vargas @grisysel @Lupus_Chat #LupusChat Q3: Mi equipo de médicos es liderado por mi reumatologo. Esté se comunica muy seguido con mi hematólogo, ginecólogo y endocrinólogo. Son excelentes. |
| #LupusChat @Lupus_Chat RT @_iluvnychthings: A4. This is really something the patient should communicate if they are changing physicians other wise the doctor should know...#LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q5: Q5: Do you feel like you’ve ever experienced some type of discrimination while speaking with your doctor? If so, how did you address it? #LupusChat https://t.co/kwhPdnnsQ1 |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: As a Black Woman, I have experience discrimination quite often. Most notably when it comes to my pain levels. The data shows we are believed less than our white male counterparts. Definitely my lived experience. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. To be honest, with the docs I have a recurring relationship with, I don't think that I have had this issue. But in hospital settings tho?! Whew Lawd! #LupusChat |
| #LupusChat @Lupus_Chat RT @grisysel: @Lupus_Chat #LupusChat Q3: @Lupus_Chat #LupusChat Q3: Mi equipo de médicos es liderado por mi reumatologo. Esté se comunica muy seguido con mi hematólogo, ginecólogo y endocrinólogo. Son excelentes. |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. To be honest, with the docs I have a recurring relationship with, I don't think that I have had this issue. But in hospital settings tho?! Whew Lawd! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. I've had my pain recognized but not addressed for a long time. As in Yes we know you are in pain, but also we're not doing anything about it. My 07-08 flares were unnecessarily painful. And I was newly diagnosed and didn't know any better. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A5: A5: As a Black Woman, I have experience discrimination quite often. Most notably when it comes to my pain levels. The data shows we are believed less than our white male counterparts. Definitely my lived experience. #LupusChat |
| You cant fight the good fight if you're dead @sickysummie RT @SynceNerd_Carli: A5: A5: As a Black Woman, I have experience discrimination quite often. Most notably when it comes to my pain levels. The data shows we are believed less than our white male counterparts. Definitely my lived experience. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @_iluvnychthings: A4. This is really something the patient should communicate if they are changing physicians other wise the doctor should know...#LupusChat |
| Carly by Nature @SynceNerd_Carli A5: Como mujer negra, he experimentado discriminación con bastante frecuencia. Lo más notable cuando se trata de mis niveles de dolor. Los datos muestran que se nos cree menos que nuestros homólogos blancos. Definitivamente mi experiencia vivida. #LupusChat |
| #LupusChat @Lupus_Chat ¡Estén atentos para nuestra última pregunta #LupusChat! https://t.co/3EipYjxVgE |
| #LupusChat @Lupus_Chat Stay tuned! Our last #LupusChat question is next! https://t.co/c5PjG49fVA |
| Tiffany ⁷ @TiffanyAndLupus RT @grisysel: @Lupus_Chat #LupusChat Q3: @Lupus_Chat #LupusChat Q3: Mi equipo de médicos es liderado por mi reumatologo. Esté se comunica muy seguido con mi hematólogo, ginecólogo y endocrinólogo. Son excelentes. |
| Friends AgainstLupus @AgainstLupus RT @grisysel: @Lupus_Chat #LupusChat Q3: @Lupus_Chat #LupusChat Q3: Mi equipo de médicos es liderado por mi reumatologo. Esté se comunica muy seguido con mi hematólogo, ginecólogo y endocrinólogo. Son excelentes. |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A5: A5: On the several occasions that I’ve discussed the level of pain I’m both living with & experiencing I’ve been met with discrimination in the form of disbelief, nonchalance, and a reluctance to properly treat my pain. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @sickysummie: A5: A5: Yes. I've been seen as a malingerer pretty often. I filed a complaint about the last rheumy, who said "it's mainly psychiatric" then didn't give a psych referral. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A4. I can explain and speak for myself and make the information for personable and in context, but it's very reassuring that the members of my care team are connected in that way. Technology for the win. #LupusChat |
| Lucy chen @aktg868 The both clinics I go to communicate well with me and I always update them about any medication change when they ask. as for knowing what I take I dont have a list cause I know it off the back of my head . But it's good to have one on your person in case #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A5. Years ago after my initial DX. My PCP at the time didn't discuss tests or answer my questions at appointments. Nor did he prescribe the right medication or talk to my kidney doctor. My kidney doctor eventually became my PCP. #LupusChat |
| #LupusChat @Lupus_Chat Q6: Si los miembros de su equipo de atención tienen opiniones diferentes sobre su plan de tratamiento, qué pasos se pueden tomar para resolver este conflicto? #LupusChat https://t.co/mRvFxLup7h |
| #LupusChat @Lupus_Chat Q6: If members of your care team have differing opinions on the direction of your treatment plan, what steps can be taken to resolve this conflict? #LupusChat https://t.co/PJjJIUCxsU |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A5. Years ago after my initial DX. My PCP at the time didn't discuss tests or answer my questions at appointments. Nor did he prescribe the right medication or talk to my kidney doctor. My kidney doctor eventually became my PCP. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @aktg868: The both clinics I go to communicate well with me and I always update them about any medication change when they ask. as for knowing what I take I dont have a list cause I know it off the back of my head . But it's good to have one on your person in case #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. Until very recently I didn't even know that it didn't have to be this way back then. It was one of the worse times in my life and it could've been avoided. Infuriating. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A5: A5: Yes. I've been seen as a malingerer pretty often. I filed a complaint about the last rheumy, who said "it's mainly psychiatric" then didn't give a psych referral. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. I can explain and speak for myself and make the information for personable and in context, but it's very reassuring that the members of my care team are connected in that way. Technology for the win. #LupusChat |
| You cant fight the good fight if you're dead @sickysummie @Xtel007 I've stopped mentioning pain because I lose credibility. It won't be treated anyway :/ #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. I remember telling a neuro (again while in the hospital) that the bottom of my feet were really sensitive and that passing his instrument (to test reflexes etc) causes pain, and he replied "no it doesn't". I was just like.. what. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. Until very recently I didn't even know that it didn't have to be this way back then. It was one of the worse times in my life and it could've been avoided. Infuriating. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A5: A5: On the several occasions that I’ve discussed the level of pain I’m both living with & experiencing I’ve been met with discrimination in the form of disbelief, nonchalance, and a reluctance to properly treat my pain. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A6: It’s best to let the differing opinions in treatment defer to whichever doctor takes lead over managing your care, let them know you’ll discuss and consult with that doctor before any decisions will be made. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. To be honest, with the docs I have a recurring relationship with, I don't think that I have had this issue. But in hospital settings tho?! Whew Lawd! #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. I've had my pain recognized but not addressed for a long time. As in Yes we know you are in pain, but also we're not doing anything about it. My 07-08 flares were unnecessarily painful. And I was newly diagnosed and didn't know any better. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A5: A5: I’ve burst into tears trying to maintain my composure and “convince” physicians that my pain is real -- while feeling completely dehumanized. Being a Black woman is very difficult in medical settings trying to get my pain addressed and treated. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: Como mujer negra, he experimentado discriminación con bastante frecuencia. Lo más notable cuando se trata de mis niveles de dolor. Los datos muestran que se nos cree menos que nuestros homólogos blancos. Definitivamente mi experiencia vivida. #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:5 Too many times to discuss. I had a fatphobic doc. I was a size 2 but thick. My doc wasn't used to African American/latinx shapes. He kept telling me to lose weight, other doctors disagreed w him. I did lose weight; whatever he weighed when I left that practice 😂 #LupusChat https://t.co/GUcv3IMfAc |
| #LupusChat @Lupus_Chat RT @aktg868: The both clinics I go to communicate well with me and I always update them about any medication change when they ask. as for knowing what I take I dont have a list cause I know it off the back of my head . But it's good to have one on your person in case #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A5 : Yes. Started being more assertive and nononsense. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A5. Years ago after my initial DX. My PCP at the time didn't discuss tests or answer my questions at appointments. Nor did he prescribe the right medication or talk to my kidney doctor. My kidney doctor eventually became my PCP. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. Until very recently I didn't even know that it didn't have to be this way back then. It was one of the worse times in my life and it could've been avoided. Infuriating. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A5: A5: As a Black Woman, I have experience discrimination quite often. Most notably when it comes to my pain levels. The data shows we are believed less than our white male counterparts. Definitely my lived experience. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: @Xtel007 I've stopped mentioning pain because I lose credibility. It won't be treated anyway :/ #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. I remember telling a neuro (again while in the hospital) that the bottom of my feet were really sensitive and that passing his instrument (to test reflexes etc) causes pain, and he replied "no it doesn't". I was just like.. what. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q6: Q6: If members of your care team have differing opinions on the direction of your treatment plan, what steps can be taken to resolve this conflict? #LupusChat https://t.co/PJjJIUCxsU |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q6: Q6: If members of your care team have differing opinions on the direction of your treatment plan, what steps can be taken to resolve this conflict? #LupusChat https://t.co/PJjJIUCxsU |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q6: Q6: If members of your care team have differing opinions on the direction of your treatment plan, what steps can be taken to resolve this conflict? #LupusChat https://t.co/PJjJIUCxsU |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q6: Q6: Si los miembros de su equipo de atención tienen opiniones diferentes sobre su plan de tratamiento, qué pasos se pueden tomar para resolver este conflicto? #LupusChat https://t.co/mRvFxLup7h |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: It’s best to let the differing opinions in treatment defer to whichever doctor takes lead over managing your care, let them know you’ll discuss and consult with that doctor before any decisions will be made. #LupusChat |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:5 Too many times to discuss. I had a fatphobic doc. I was a size 2 but thick. My doc wasn't used to African American/latinx shapes. He kept telling me to lose weight, other doctors disagreed w him. I did lose weight; whatever he weighed when I left that practice 😂 #LupusChat https://t.co/GUcv3IMfAc |
| Tiffany ⁷ @TiffanyAndLupus A6: Lo mejor es dejar que las diferentes opiniones en el tratamiento se aferren a cualquier médico que tome plomo en el manejo de su atención, hágales saber que discutirá y consulte con ese médico antes de que se tome cualquier decisión. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A6: A6: It’s best to let the differing opinions in treatment defer to whichever doctor takes lead over managing your care, let them know you’ll discuss and consult with that doctor before any decisions will be made. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @sickysummie This is so sad when we have to do that. It shouldn't be this way and we shouldn't have to suffer in silence. I'm sorry this is happening to you. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Yes. Started being more assertive and nononsense. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A5: A5: As a Black Woman, I have experience discrimination quite often. Most notably when it comes to my pain levels. The data shows we are believed less than our white male counterparts. Definitely my lived experience. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A6: A6: It’s best to let the differing opinions in treatment defer to whichever doctor takes lead over managing your care, let them know you’ll discuss and consult with that doctor before any decisions will be made. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat A5. Years ago after my initial DX. My PCP at the time didn't discuss tests or answer my questions at appointments. Nor did he prescribe the right medication or talk to my kidney doctor. My kidney doctor eventually became my PCP. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: @sickysummie This is so sad when we have to do that. It shouldn't be this way and we shouldn't have to suffer in silence. I'm sorry this is happening to you. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: Lo mejor es dejar que las diferentes opiniones en el tratamiento se aferren a cualquier médico que tome plomo en el manejo de su atención, hágales saber que discutirá y consulte con ese médico antes de que se tome cualquier decisión. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: @sickysummie This is so sad when we have to do that. It shouldn't be this way and we shouldn't have to suffer in silence. I'm sorry this is happening to you. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Yes. Started being more assertive and nononsense. #LupusChat |
| Lucy chen @aktg868 RT @TiffanyAndLupus: A6: A6: It’s best to let the differing opinions in treatment defer to whichever doctor takes lead over managing your care, let them know you’ll discuss and consult with that doctor before any decisions will be made. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:5 Too many times to discuss. I had a fatphobic doc. I was a size 2 but thick. My doc wasn't used to African American/latinx shapes. He kept telling me to lose weight, other doctors disagreed w him. I did lose weight; whatever he weighed when I left that practice 😂 #LupusChat https://t.co/GUcv3IMfAc |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A6: A6: It’s best to let the differing opinions in treatment defer to whichever doctor takes lead over managing your care, let them know you’ll discuss and consult with that doctor before any decisions will be made. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Yes. Started being more assertive and nononsense. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @FKLUPUS: A:5 Too many times to discuss. I had a fatphobic doc. I was a size 2 but thick. My doc wasn't used to African American/latinx shapes. He kept telling me to lose weight, other doctors disagreed w him. I did lose weight; whatever he weighed when I left that practice 😂 #LupusChat https://t.co/GUcv3IMfAc |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q6: Q6: If members of your care team have differing opinions on the direction of your treatment plan, what steps can be taken to resolve this conflict? #LupusChat https://t.co/PJjJIUCxsU |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q6: Q6: If members of your care team have differing opinions on the direction of your treatment plan, what steps can be taken to resolve this conflict? #LupusChat https://t.co/PJjJIUCxsU |
| Grisel Vargas @grisysel @Lupus_Chat #LupusChat Q6: Ha sucedido y ellos entre si se comunican entre ellos y conmigo para entre todos discutir opciones y determinar que es lo mejor. En operaciones y tratamientos están todos pendientes y me visitan en el hospital. |
| Lucy chen @aktg868 When you said 'disbelief' I felt that one.. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. I've always had a lot of trust in my rheumarologist, so honestly I'd go with her opinions over the others lol. But also, our relationship is great because she tells me what she thinks, but always lets me know that ultimayely it is my decision. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. Secondly, my rheumy is always more than willing to talk and get the opinions of other specialists, esp if it's not her immediate area of expertise. So they can talk to come to a consensus. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @grisysel: @Lupus_Chat #LupusChat Q6: @Lupus_Chat #LupusChat Q6: Ha sucedido y ellos entre si se comunican entre ellos y conmigo para entre todos discutir opciones y determinar que es lo mejor. En operaciones y tratamientos están todos pendientes y me visitan en el hospital. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A6: A6: It’s best to let the differing opinions in treatment defer to whichever doctor takes lead over managing your care, let them know you’ll discuss and consult with that doctor before any decisions will be made. #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:6 After what happened recently (flare from old rheumy weaning meds when myself and others disagreed this was a good plan) I trust myself first. I am my best advocate. Research, get 2nd, 3rd, 4th, opinions and again trust yourself, go from there... #LupusChat https://t.co/DqkyTwcF3o |
| #LupusChat @Lupus_Chat RT @grisysel: @Lupus_Chat #LupusChat Q6: @Lupus_Chat #LupusChat Q6: Ha sucedido y ellos entre si se comunican entre ellos y conmigo para entre todos discutir opciones y determinar que es lo mejor. En operaciones y tratamientos están todos pendientes y me visitan en el hospital. |
| You cant fight the good fight if you're dead @sickysummie A6: I usually defer to the specialist but also do my own research. Every choice is a compromise so I decide what I can/can't live with. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @grisysel: @Lupus_Chat #LupusChat Q6: @Lupus_Chat #LupusChat Q6: Ha sucedido y ellos entre si se comunican entre ellos y conmigo para entre todos discutir opciones y determinar que es lo mejor. En operaciones y tratamientos están todos pendientes y me visitan en el hospital. |
 | PrincessCarna 🦄🦄🦄 @PrincessCarna @Lupus_Chat A3: My nephrologist. That is the organ my lupus gives the attention to the transplant drives the bus. I was lucky enough to find a young physician just out of med school that specializes in lupus nephritis so 13 years later that has saved me from adding new docs. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @grisysel: @Lupus_Chat #LupusChat Q6: @Lupus_Chat #LupusChat Q6: Ha sucedido y ellos entre si se comunican entre ellos y conmigo para entre todos discutir opciones y determinar que es lo mejor. En operaciones y tratamientos están todos pendientes y me visitan en el hospital. |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:6 After what happened recently (flare from old rheumy weaning meds when myself and others disagreed this was a good plan) I trust myself first. I am my best advocate. Research, get 2nd, 3rd, 4th, opinions and again trust yourself, go from there... #LupusChat https://t.co/DqkyTwcF3o |
| Friends AgainstLupus @AgainstLupus RT @FKLUPUS: A:6 After what happened recently (flare from old rheumy weaning meds when myself and others disagreed this was a good plan) I trust myself first. I am my best advocate. Research, get 2nd, 3rd, 4th, opinions and again trust yourself, go from there... #LupusChat https://t.co/DqkyTwcF3o |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:6 After what happened recently (flare from old rheumy weaning meds when myself and others disagreed this was a good plan) I trust myself first. I am my best advocate. Research, get 2nd, 3rd, 4th, opinions and again trust yourself, go from there... #LupusChat https://t.co/DqkyTwcF3o |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q6: Q6: If members of your care team have differing opinions on the direction of your treatment plan, what steps can be taken to resolve this conflict? #LupusChat https://t.co/PJjJIUCxsU |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. Secondly, my rheumy is always more than willing to talk and get the opinions of other specialists, esp if it's not her immediate area of expertise. So they can talk to come to a consensus. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. I've always had a lot of trust in my rheumarologist, so honestly I'd go with her opinions over the others lol. But also, our relationship is great because she tells me what she thinks, but always lets me know that ultimayely it is my decision. #LupusChat |
| #LupusChat @Lupus_Chat Agradeciendo a cada uno de ustedes por unirse a nuestra discusión #LupusChat enfocada en coordinar nuestra atención. Apreciamos todos los consejos y sugerencias que ha compartido. https://t.co/xlj45D2zLN |
| #LupusChat @Lupus_Chat Thanking each of you for joining our #LupusChat discussion focused on coordinating our care. We appreciate all the insights and tips you’ve shared. https://t.co/kN5PwhOTDS |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @bellaproduces It is truly the best thing ever! #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: A6: A6: I usually defer to the specialist but also do my own research. Every choice is a compromise so I decide what I can/can't live with. #LupusChat |
| #LupusChat @Lupus_Chat RT @PrincessCarna: @Lupus_Chat A3: @Lupus_Chat A3: My nephrologist. That is the organ my lupus gives the attention to the transplant drives the bus. I was lucky enough to find a young physician just out of med school that specializes in lupus nephritis so 13 years later that has saved me from adding new docs. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @FKLUPUS: A:6 After what happened recently (flare from old rheumy weaning meds when myself and others disagreed this was a good plan) I trust myself first. I am my best advocate. Research, get 2nd, 3rd, 4th, opinions and again trust yourself, go from there... #LupusChat https://t.co/DqkyTwcF3o |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @sickysummie: A6: A6: I usually defer to the specialist but also do my own research. Every choice is a compromise so I decide what I can/can't live with. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @PrincessCarna: @Lupus_Chat A3: @Lupus_Chat A3: My nephrologist. That is the organ my lupus gives the attention to the transplant drives the bus. I was lucky enough to find a young physician just out of med school that specializes in lupus nephritis so 13 years later that has saved me from adding new docs. #LupusChat |
| #LupusChat @Lupus_Chat Nuestra próxima discusión será el domingo 2 de febrero de 2020 a las 3 PM hora del este. Siga el hashtag #LupusChat durante toda la semana para actualizaciones de temas. ¡Asegúrese de marcar sus calendarios para guardar la fecha! https://t.co/ExSFvdO4pv |
| #LupusChat @Lupus_Chat Our next discussion will be Sunday February 2, 2020 at 3 PM Eastern Time. Follow the #LupusChat hashtag throughout the week for topic updates. Be sure to mark your calendars to save the date! https://t.co/wpxGjwqU5y |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion focused on coordinating our care. We appreciate all the insights and tips you’ve shared. https://t.co/kN5PwhOTDS |
| You cant fight the good fight if you're dead @sickysummie @bellaproduces My PCP refers me to specialists in the same records system. SO HELPFUL! #LupusChat |
| #LupusChat @Lupus_Chat Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/DrkasEDb9d |
| #LupusChat @Lupus_Chat Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/8ojKv2b2Ff |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Thank you everyone for joining today's #LupusChat! It's always so great to share and learn from one another! https://t.co/6JICTSIpTz |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Our next discussion will be Sunday February 2, 2020 at 3 PM Eastern Time. Follow the #LupusChat hashtag throughout the week for topic updates. Be sure to mark your calendars to save the date! https://t.co/wpxGjwqU5y |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion focused on coordinating our care. We appreciate all the insights and tips you’ve shared. https://t.co/kN5PwhOTDS |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Agradeciendo a cada uno de ustedes por unirse a nuestra discusión #LupusChat enfocada en coordinar nuestra atención. Apreciamos todos los consejos y sugerencias que ha compartido. https://t.co/xlj45D2zLN |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/8ojKv2b2Ff |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Nuestra próxima discusión será el domingo 2 de febrero de 2020 a las 3 PM hora del este. Siga el hashtag #LupusChat durante toda la semana para actualizaciones de temas. ¡Asegúrese de marcar sus calendarios para guardar la fecha! https://t.co/ExSFvdO4pv |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Our next discussion will be Sunday February 2, 2020 at 3 PM Eastern Time. Follow the #LupusChat hashtag throughout the week for topic updates. Be sure to mark your calendars to save the date! https://t.co/wpxGjwqU5y |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A6: A6: I usually defer to the specialist but also do my own research. Every choice is a compromise so I decide what I can/can't live with. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @_iluvnychthings: A3. My Rheumatologist takes the lead. she could do better with communicating with my other doctors. My PCP does a great job keeping in contact with everyone involved in my care. It would be nice if there was a universal system for all drs and specialist to communicate #lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. I've always had a lot of trust in my rheumarologist, so honestly I'd go with her opinions over the others lol. But also, our relationship is great because she tells me what she thinks, but always lets me know that ultimayely it is my decision. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. Secondly, my rheumy is always more than willing to talk and get the opinions of other specialists, esp if it's not her immediate area of expertise. So they can talk to come to a consensus. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion focused on coordinating our care. We appreciate all the insights and tips you’ve shared. https://t.co/kN5PwhOTDS |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Our next discussion will be Sunday February 2, 2020 at 3 PM Eastern Time. Follow the #LupusChat hashtag throughout the week for topic updates. Be sure to mark your calendars to save the date! https://t.co/wpxGjwqU5y |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A6. This doesn't happen too often anymore. When it has occurred,I've had the doctors contact each other via e-mail or fax. Or I get a second/third opinion if needed. Had to do that in October when the bleeding was too bad and I ultimately had a hysterectomy. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion focused on coordinating our care. We appreciate all the insights and tips you’ve shared. https://t.co/kN5PwhOTDS |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Our next discussion will be Sunday February 2, 2020 at 3 PM Eastern Time. Follow the #LupusChat hashtag throughout the week for topic updates. Be sure to mark your calendars to save the date! https://t.co/wpxGjwqU5y |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Nuestra próxima discusión será el domingo 2 de febrero de 2020 a las 3 PM hora del este. Siga el hashtag #LupusChat durante toda la semana para actualizaciones de temas. ¡Asegúrese de marcar sus calendarios para guardar la fecha! https://t.co/ExSFvdO4pv |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A6. This doesn't happen too often anymore. When it has occurred,I've had the doctors contact each other via e-mail or fax. Or I get a second/third opinion if needed. Had to do that in October when the bleeding was too bad and I ultimately had a hysterectomy. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: Thank you everyone for joining today's #LupusChat! It's always so great to share and learn from one another! https://t.co/6JICTSIpTz |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: Do you feel like you’ve ever experienced some type of discrimination while speaking with your doctor? If so, how did you address it? #LupusChat https://t.co/kwhPdnnsQ1 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: Siente que alguna vez a experimentado algún tipo de discriminación al hablar con su médico? Si es así, cómo usted lo manejo? #LupusChat https://t.co/YsKcHzMBFi |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: Todos mis médicos están separados de la misma red de hospitales. Cada uno tiende a revisar mi archivo antes o al comienzo de nuestra consulta. Tienen acceso a todas las notas y cambios. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: #LupusChat via @DrDavidLazar (A3) |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: All my physicians are apart of the same hospital network. They each tend to review my file prior to or at the start of our consult. They have access to all notes and changes. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Our next discussion will be Sunday February 2, 2020 at 3 PM Eastern Time. Follow the #LupusChat hashtag throughout the week for topic updates. Be sure to mark your calendars to save the date! https://t.co/wpxGjwqU5y |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A4. I always inform my doctors at each visit. They also have everything listed on the portals. That came in handy when I had to go to the ER and Presbyterian had it via MyChart. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: I also inform them verbally or via email of any changes. It helps to keep us all on the same page. #LupusChat |
| Caring For Lupus @CaringForLupus RT @_iluvnychthings: A3. My Rheumatologist takes the lead. she could do better with communicating with my other doctors. My PCP does a great job keeping in contact with everyone involved in my care. It would be nice if there was a universal system for all drs and specialist to communicate #lupuschat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: También les informo verbalmente o por correo electrónico de cualquier cambio. Ayuda a mantenernos a todos en la misma página. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A5: A5: On the several occasions that I’ve discussed the level of pain I’m both living with & experiencing I’ve been met with discrimination in the form of disbelief, nonchalance, and a reluctance to properly treat my pain. #LupusChat |
| Caring For Lupus @CaringForLupus RT @sickysummie: A5: A5: Yes. I've been seen as a malingerer pretty often. I filed a complaint about the last rheumy, who said "it's mainly psychiatric" then didn't give a psych referral. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A4. I can explain and speak for myself and make the information for personable and in context, but it's very reassuring that the members of my care team are connected in that way. Technology for the win. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A5: A5: I’ve burst into tears trying to maintain my composure and “convince” physicians that my pain is real -- while feeling completely dehumanized. Being a Black woman is very difficult in medical settings trying to get my pain addressed and treated. #LupusChat |
| Caring For Lupus @CaringForLupus RT @_iluvnychthings: A4. This is really something the patient should communicate if they are changing physicians other wise the doctor should know...#LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A5: A5: He estallado en lágrimas tratando de mantener mi compostura y "convencer" a los médicos de que mi dolor es real, mientras me siento completamente deshumanizado. Ser una mujer negra es muy difícil en entornos médicos tratando de que mi dolor sea abordado y tratado. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A5: A5: As a Black Woman, I have experience discrimination quite often. Most notably when it comes to my pain levels. The data shows we are believed less than our white male counterparts. Definitely my lived experience. #LupusChat |
| Caring For Lupus @CaringForLupus RT @grisysel: @Lupus_Chat #LupusChat Q3: @Lupus_Chat #LupusChat Q3: Mi equipo de médicos es liderado por mi reumatologo. Esté se comunica muy seguido con mi hematólogo, ginecólogo y endocrinólogo. Son excelentes. |
| Caring For Lupus @CaringForLupus RT @Xtel007: A5. To be honest, with the docs I have a recurring relationship with, I don't think that I have had this issue. But in hospital settings tho?! Whew Lawd! #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A5. I've had my pain recognized but not addressed for a long time. As in Yes we know you are in pain, but also we're not doing anything about it. My 07-08 flares were unnecessarily painful. And I was newly diagnosed and didn't know any better. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A5: A5: Como mujer negra, he experimentado discriminación con bastante frecuencia. Lo más notable cuando se trata de mis niveles de dolor. Los datos muestran que se nos cree menos que nuestros homólogos blancos. Definitivamente mi experiencia vivida. #LupusChat |
| Caring For Lupus @CaringForLupus RT @aktg868: The both clinics I go to communicate well with me and I always update them about any medication change when they ask. as for knowing what I take I dont have a list cause I know it off the back of my head . But it's good to have one on your person in case #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A5. Years ago after my initial DX. My PCP at the time didn't discuss tests or answer my questions at appointments. Nor did he prescribe the right medication or talk to my kidney doctor. My kidney doctor eventually became my PCP. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q6: Q6: Si los miembros de su equipo de atención tienen opiniones diferentes sobre su plan de tratamiento, qué pasos se pueden tomar para resolver este conflicto? #LupusChat https://t.co/mRvFxLup7h |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q6: Q6: If members of your care team have differing opinions on the direction of your treatment plan, what steps can be taken to resolve this conflict? #LupusChat https://t.co/PJjJIUCxsU |
| Caring For Lupus @CaringForLupus RT @Xtel007: A5. Until very recently I didn't even know that it didn't have to be this way back then. It was one of the worse times in my life and it could've been avoided. Infuriating. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A5. I remember telling a neuro (again while in the hospital) that the bottom of my feet were really sensitive and that passing his instrument (to test reflexes etc) causes pain, and he replied "no it doesn't". I was just like.. what. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: It’s best to let the differing opinions in treatment defer to whichever doctor takes lead over managing your care, let them know you’ll discuss and consult with that doctor before any decisions will be made. #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Yes. Started being more assertive and nononsense. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: Lo mejor es dejar que las diferentes opiniones en el tratamiento se aferren a cualquier médico que tome plomo en el manejo de su atención, hágales saber que discutirá y consulte con ese médico antes de que se tome cualquier decisión. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: @sickysummie This is so sad when we have to do that. It shouldn't be this way and we shouldn't have to suffer in silence. I'm sorry this is happening to you. #LupusChat |
| Caring For Lupus @CaringForLupus RT @grisysel: @Lupus_Chat #LupusChat Q6: @Lupus_Chat #LupusChat Q6: Ha sucedido y ellos entre si se comunican entre ellos y conmigo para entre todos discutir opciones y determinar que es lo mejor. En operaciones y tratamientos están todos pendientes y me visitan en el hospital. |
| Caring For Lupus @CaringForLupus RT @Xtel007: A6. I've always had a lot of trust in my rheumarologist, so honestly I'd go with her opinions over the others lol. But also, our relationship is great because she tells me what she thinks, but always lets me know that ultimayely it is my decision. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A6. Secondly, my rheumy is always more than willing to talk and get the opinions of other specialists, esp if it's not her immediate area of expertise. So they can talk to come to a consensus. #LupusChat |
| Caring For Lupus @CaringForLupus RT @FKLUPUS: A:6 After what happened recently (flare from old rheumy weaning meds when myself and others disagreed this was a good plan) I trust myself first. I am my best advocate. Research, get 2nd, 3rd, 4th, opinions and again trust yourself, go from there... #LupusChat https://t.co/DqkyTwcF3o |
| Caring For Lupus @CaringForLupus RT @sickysummie: A6: A6: I usually defer to the specialist but also do my own research. Every choice is a compromise so I decide what I can/can't live with. #LupusChat |
| Caring For Lupus @CaringForLupus RT @PrincessCarna: @Lupus_Chat A3: @Lupus_Chat A3: My nephrologist. That is the organ my lupus gives the attention to the transplant drives the bus. I was lucky enough to find a young physician just out of med school that specializes in lupus nephritis so 13 years later that has saved me from adding new docs. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A6. This doesn't happen too often anymore. When it has occurred,I've had the doctors contact each other via e-mail or fax. Or I get a second/third opinion if needed. Had to do that in October when the bleeding was too bad and I ultimately had a hysterectomy. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Thank you everyone for joining today's #LupusChat! It's always so great to share and learn from one another! https://t.co/6JICTSIpTz |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @FKLUPUS @Lupus_Chat Wow! I hope this keeps up, and this new doc and office can give you the overall support you need and deserve! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus Sending gratitude I everyone who participated in #LupusChat today. These conversations are everything I wish I had when I was first diagnosed. Thank you for sharing your experiences so we can all learn from them. 💜🙏🏾 https://t.co/I4EvHPQclB |
| You cant fight the good fight if you're dead @sickysummie RT @TiffanyAndLupus: Sending gratitude I everyone who participated in #LupusChat today. These conversations are everything I wish I had when I was first diagnosed. Thank you for sharing your experiences so we can all learn from them. 💜🙏🏾 https://t.co/I4EvHPQclB |
| #LupusChat @Lupus_Chat A4 via @jking95julie #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Gurl: |
| David Lazar, MD MPH @DrDavidLazar @jking95julie @Lupus_Chat That’s definitely my recommendation! #LupusChat |
| David Lazar, MD MPH @DrDavidLazar I've been reading about several new medications on the horizon for #lupus & #lupus-nephritis #Lupuschat |
#LupusChat content from Twitter.