#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
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See #LupusChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Carly by Nature @SynceNerd_Carli Ayeeee!!! It's #LupusChat Timeeee!!!!! Let's Goooooo!!!!! https://t.co/qTgrA29Y2B |
 | #LupusChat @Lupus_Chat ¡Bienvenidos a #LupusChat! Hoy discutiremos el crecimiento que hemos experimentado desde que tuvimos nuestras muchas conversaciones significativas. https://t.co/HxrKuOaUzm |
| #LupusChat @Lupus_Chat Welcome to #LupusChat! Today we’ll discuss the growth we’ve experienced since having our many meaningful conversations. https://t.co/txkttCbjBX |
 | Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss the growth we’ve experienced since having our many meaningful conversations. https://t.co/txkttCbjBX |
 | Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss the growth we’ve experienced since having our many meaningful conversations. https://t.co/txkttCbjBX |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: It’s the last #LupusChat til May y’all! Join us at 3 PM today if you don’t wanna miss it. 🎉 We’ll be reflecting on the personal growth we’ve experienced and the role @Lupus_Chat has had in that! https://t.co/0gZDivAD0n |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss the growth we’ve experienced since having our many meaningful conversations. https://t.co/txkttCbjBX |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: ¡Bienvenidos a #LupusChat! Hoy discutiremos el crecimiento que hemos experimentado desde que tuvimos nuestras muchas conversaciones significativas. https://t.co/HxrKuOaUzm |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: Looking forward to #Lupuschat today at 3pm eastern!!! |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: Today! In like...less than 15 min! #LupusChat 💜❤💜 |
| #LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| #LupusChat @Lupus_Chat Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
 | The Lupus Rainbow @thelupusrainbow RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss the growth we’ve experienced since having our many meaningful conversations. https://t.co/txkttCbjBX |
| Carly by Nature @SynceNerd_Carli #LupusChat Happening neeeeeeooooowwwww!! We’re checking in with y’all today. 👇🏾 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| The Lupus Rainbow @thelupusrainbow @Lupus_Chat Fabulous...thanks 💜💜💜 #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| Carly by Nature @SynceNerd_Carli Just a reminder: It's #LupusChat Sunday! So YOU ALREADY KNOW, for the next hour and change its all Lupus everything over here. Mute as needed or come learn. Whatever works for you. https://t.co/mAB2VqQgDP |
| #LupusChat @Lupus_Chat Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/Sf8vmFU5Uf |
| #LupusChat @Lupus_Chat Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/t2rM4sgi0l |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: #LupusChat Happening neeeeeeooooowwwww!! We’re checking in with y’all today. 👇🏾 |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Ayeeee!!! It's #LupusChat Timeeee!!!!! Let's Goooooo!!!!! https://t.co/qTgrA29Y2B |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: Looking forward to #Lupuschat today at 3pm eastern!!! |
| #LupusChat @Lupus_Chat Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vIY5wHosuv |
| #LupusChat @Lupus_Chat Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/p1PQ9x8rHw |
| #LupusChat @Lupus_Chat We’re live now! #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: It’s the last #LupusChat til May y’all! Join us at 3 PM today if you don’t wanna miss it. 🎉 We’ll be reflecting on the personal growth we’ve experienced and the role @Lupus_Chat has had in that! https://t.co/0gZDivAD0n |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/t2rM4sgi0l |
| The Lupus Rainbow @thelupusrainbow RT @Lupus_Chat: We’re live now! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/Sf8vmFU5Uf |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vIY5wHosuv |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/p1PQ9x8rHw |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: We’re live now! #LupusChat |
| #LupusChat @Lupus_Chat Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/iA9IBxqrJj |
| #LupusChat @Lupus_Chat As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/3tPNTx7mYZ |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: We’re live now! #LupusChat |
| The Lupus Rainbow @thelupusrainbow RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vIY5wHosuv |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/t2rM4sgi0l |
 | MissNikkiAnn @MissNikkiAnn RT @TiffanyAndLupus: My anxiety is real. My depression is real. My lupus is real. My disability is real. & this is how they affect my body. #LupusChat https://t.co/BxG8ncHdR6 |
| The Lupus Rainbow @thelupusrainbow RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/3tPNTx7mYZ |
| #LupusChat @Lupus_Chat ¡Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál fue el primer disco, cinta de casete o CD que alguna vez tuvo? https://t.co/jfsTOpsp5X |
| #LupusChat @Lupus_Chat Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what was the first record, cassette tape, or CD that you ever owned? https://t.co/4T3kEfF2Xh |
 | itsmorenamorena @itsmorenamorena Let's get it! I'm here #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/iA9IBxqrJj |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/3tPNTx7mYZ |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: ¡Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál fue el primer disco, cinta de casete o CD que alguna vez tuvo? https://t.co/jfsTOpsp5X |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what was the first record, cassette tape, or CD that you ever owned? https://t.co/4T3kEfF2Xh |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: Let's get it! I'm here #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/p1PQ9x8rHw |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/p1PQ9x8rHw |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/3tPNTx7mYZ |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what was the first record, cassette tape, or CD that you ever owned? https://t.co/4T3kEfF2Xh |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what was the first record, cassette tape, or CD that you ever owned? https://t.co/4T3kEfF2Xh |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what was the first record, cassette tape, or CD that you ever owned? https://t.co/4T3kEfF2Xh |
| Tiffany ⁷ @TiffanyAndLupus Hello! I’m Tiffany, your #LupusChat co-host from New York City. The rona is really doing a number on my anxiety levels. & the first CD I ever bought was RUFF RYDERS Volume III! https://t.co/ywQrf7FZ9b |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 It's #LupusChat time! Do you have tour snacks ready? Mine is ice cream with caramel sauce! |
| Carly by Nature @SynceNerd_Carli Welcome everyone! Thanks for joining today. I'm Carly, #LupusChat Co-host, Patient Advocate, and as the name says all around Sci nerd. First CD purchased with my own $ was Eminem Slim Shady LP. My family bought all others before. I didn't want the edits. I'll leave it there smh https://t.co/ufIzgykGyY |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. The rona is really doing a number on my anxiety levels. & the first CD I ever bought was RUFF RYDERS Volume III! https://t.co/ywQrf7FZ9b |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss the growth we’ve experienced since having our many meaningful conversations. https://t.co/txkttCbjBX |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Welcome everyone! Thanks for joining today. I'm Carly, #LupusChat Co-host, Patient Advocate, and as the name says all around Sci nerd. First CD purchased with my own $ was Eminem Slim Shady LP. My family bought all others before. I didn't want the edits. I'll leave it there smh https://t.co/ufIzgykGyY |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. The rona is really doing a number on my anxiety levels. & the first CD I ever bought was RUFF RYDERS Volume III! https://t.co/ywQrf7FZ9b |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: It's #LupusChat time! Do you have tour snacks ready? Mine is ice cream with caramel sauce! |
 | THINA—OGKPOPSTAN.COM @ogkpopstan98 I’m participating in this week’s #LupusChat!😅 |
| Tiffany ⁷ @TiffanyAndLupus @SynceNerd_Carli Omg this gif 🤣🤣🤣🤣🤣 #LupusChat |
| Carly by Nature @SynceNerd_Carli ¡Bienvenidos todos! Gracias por acompañarnos hoy. Soy Carly, coanfitrión de #LupusChat, defensora de pacientes, y como su nombre lo dice, amo la ciencia. |
 | Michelle @wordsbymj RT @SynceNerd_Carli: #LupusChat Happening neeeeeeooooowwwww!! We’re checking in with y’all today. 👇🏾 |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. The rona is really doing a number on my anxiety levels. & the first CD I ever bought was RUFF RYDERS Volume III! https://t.co/ywQrf7FZ9b |
| Friends AgainstLupus @AgainstLupus RT @SynceNerd_Carli: Welcome everyone! Thanks for joining today. I'm Carly, #LupusChat Co-host, Patient Advocate, and as the name says all around Sci nerd. First CD purchased with my own $ was Eminem Slim Shady LP. My family bought all others before. I didn't want the edits. I'll leave it there smh https://t.co/ufIzgykGyY |
| Carly by Nature @SynceNerd_Carli El primer álbum que compré con mis propios $ fue Eminem Slim Shady LP. Mi familia compró todos los demás antes. Quería escuchar las malas palabras. smh #LupusChat https://t.co/36SXsBMVpW |
| Carly by Nature @SynceNerd_Carli @xthina_etc Welcome back to #LupusChat Thina! Always good to have you with the fam. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what was the first record, cassette tape, or CD that you ever owned? https://t.co/4T3kEfF2Xh |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Hi everyone. This is Christele, one of your #LupusChat co-hosts, starting week 3 of Quarantine in Queens, NY. The first CD I ever owned (that I remember anyway) was DMX Flesh of My Flesh, Blood of My Blood lol |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. The rona is really doing a number on my anxiety levels. & the first CD I ever bought was RUFF RYDERS Volume III! https://t.co/ywQrf7FZ9b |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 - thina - Houston TX - currently practicing on my violin again 🎻 - Bone Thugs N Harmony’s E.1999 Eternal #LupusChat |
| Carly by Nature @SynceNerd_Carli @TiffanyAndLupus Lmaooo I was a reckless youth that may or may not have liked said violence #LupusChat 🤦🏾♀️ |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: - thina - Houston TX - currently practicing on my violin again 🎻 - Bone Thugs N Harmony’s E.1999 Eternal #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Hi everyone. This is Christele, one of your #LupusChat co-hosts, starting week 3 of Quarantine in Queens, NY. The first CD I ever owned (that I remember anyway) was DMX Flesh of My Flesh, Blood of My Blood lol |
| Carly by Nature @SynceNerd_Carli RT @xthina_etc: - thina - Houston TX - currently practicing on my violin again 🎻 - Bone Thugs N Harmony’s E.1999 Eternal #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: Welcome everyone! Thanks for joining today. I'm Carly, #LupusChat Co-host, Patient Advocate, and as the name says all around Sci nerd. First CD purchased with my own $ was Eminem Slim Shady LP. My family bought all others before. I didn't want the edits. I'll leave it there smh https://t.co/ufIzgykGyY |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Welcome everyone! Thanks for joining today. I'm Carly, #LupusChat Co-host, Patient Advocate, and as the name says all around Sci nerd. First CD purchased with my own $ was Eminem Slim Shady LP. My family bought all others before. I didn't want the edits. I'll leave it there smh https://t.co/ufIzgykGyY |
| #LupusChat @Lupus_Chat RT @Xtel007: Hi everyone. This is Christele, one of your #LupusChat co-hosts, starting week 3 of Quarantine in Queens, NY. The first CD I ever owned (that I remember anyway) was DMX Flesh of My Flesh, Blood of My Blood lol |
| itsmorenamorena @itsmorenamorena @Lupus_Chat Hola #LupusChat! I'm Stephanie in Atlanta, and Lupus has lived with me 7+ years. Lionel Richie's Can't Slow Down was the first album I owned, and Boyz II Men Cooleyhighharmony was the first CD I owned. Both were gifts..and I'm telling my age 🤣😂 |
| Tiffany ⁷ @TiffanyAndLupus @Xtel007 Yassssss! A NY classic 😍 #LupusChat |
| The Lupus Rainbow @thelupusrainbow #LupusChat...I'm Jennifer @thelupusrainbow ...from Philadelphia, Fayetteville Ga and ATL...I'm a Patient Adocate and I love working on projects 👷♀️🏢📄and I love 👥...oh yeah I have Lupus 18 years + 💜💜💜 |
 | Alexander Hardy @chrisalexander_ RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. The rona is really doing a number on my anxiety levels. & the first CD I ever bought was RUFF RYDERS Volume III! https://t.co/ywQrf7FZ9b |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat Hola #LupusChat! I'm Stephanie in Atlanta, and Lupus has lived with me 7+ years. Lionel Richie's Can't Slow Down was the first album I owned, and Boyz II Men Cooleyhighharmony was the first CD I owned. Both were gifts..and I'm telling my age 🤣😂 |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat Hola #LupusChat! I'm Stephanie in Atlanta, and Lupus has lived with me 7+ years. Lionel Richie's Can't Slow Down was the first album I owned, and Boyz II Men Cooleyhighharmony was the first CD I owned. Both were gifts..and I'm telling my age 🤣😂 |
| #LupusChat @Lupus_Chat RT @xthina_etc: - thina - Houston TX - currently practicing on my violin again 🎻 - Bone Thugs N Harmony’s E.1999 Eternal #LupusChat |
| #LupusChat @Lupus_Chat RT @thelupusrainbow: #LupusChat...I'm Jennifer @thelupusrainbow ...from Philadelphia, Fayetteville Ga and ATL...I'm a Patient Adocate and I love working on projects 👷♀️🏢📄and I love 👥...oh yeah I have Lupus 18 years + 💜💜💜 |
| #LupusChat @Lupus_Chat Is everyone ready? Here comes Question 1! #LupusChat https://t.co/2m0Fhz6otf |
| #LupusChat @Lupus_Chat Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/i8x9gvp6KS |
| Carly by Nature @SynceNerd_Carli @xthina_etc Yo. I may or may not have been blasting Mo’ Murda #LupusChat 🙃 |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Hi everyone. This is Christele, one of your #LupusChat co-hosts, starting week 3 of Quarantine in Queens, NY. The first CD I ever owned (that I remember anyway) was DMX Flesh of My Flesh, Blood of My Blood lol |
| The Lupus Rainbow @thelupusrainbow RT @Lupus_Chat: Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/i8x9gvp6KS |
| Carly by Nature @SynceNerd_Carli @delovelydes Welcome, Des! Thanks for joining #LupusChat today 💜 |
 | Dawn M Gibson @DawnMGibson RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. The rona is really doing a number on my anxiety levels. & the first CD I ever bought was RUFF RYDERS Volume III! https://t.co/ywQrf7FZ9b |
| Carly by Nature @SynceNerd_Carli RT @xthina_etc: I’m participating in this week’s #LupusChat!😅 |
| Dawn M Gibson @DawnMGibson RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what was the first record, cassette tape, or CD that you ever owned? https://t.co/4T3kEfF2Xh |
| #LupusChat @Lupus_Chat Q1: ¿Puedes compartir formas en que nuestros chats han abordado temas relevantes para tu vida cotidiana? #LupusChat https://t.co/uhW3fVvrmu |
| #LupusChat @Lupus_Chat Q1: Can you share ways that our chats have addressed topics relevant to your everyday life? #LupusChat https://t.co/npmh8gCHNs |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Is everyone ready? Here comes Question 1! #LupusChat https://t.co/2m0Fhz6otf |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1: Q1: Can you share ways that our chats have addressed topics relevant to your everyday life? #LupusChat https://t.co/npmh8gCHNs |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q1: Q1: Can you share ways that our chats have addressed topics relevant to your everyday life? #LupusChat https://t.co/npmh8gCHNs |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q1: Q1: Can you share ways that our chats have addressed topics relevant to your everyday life? #LupusChat https://t.co/npmh8gCHNs |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. The #LupusChat conversation on disclosing at work came at the perfect time when I had some anxiety about a situation at work. I learned so much about protections and accommodations. |
 | Dr. Bernice @brplana RT @doctorakerkar: COVID-19 guide (Leeds Hopital) for arthritis patients: COVID-19 guide (Leeds Hopital) for arthritis patients: How much is your risk & what precautions should you take? https://t.co/oZbqPoLdY2 #COVID2019 #rheum #ankylosingSpondylitis #Lupus #LupusChat #rheumatoidarthritis https://t.co/ASr4MwPcCa |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: Hi everyone. This is Christele, one of your #LupusChat co-hosts, starting week 3 of Quarantine in Queens, NY. The first CD I ever owned (that I remember anyway) was DMX Flesh of My Flesh, Blood of My Blood lol |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. I learned a lot from our #LupusChat with @SLeonMD about Nephritis and @DrDavidLazar about interpreting lab tests. These chats help me understand more about managing my disease. |
| Michelle @wordsbymj I'm Michelle, in the PNW and #DiagnosticLimbo. Starting to feel the staying home. I don't know about the first, but I remember a looong ago cassette tape of the Annie soundtrack. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q1: Q1: Can you share ways that our chats have addressed topics relevant to your everyday life? #LupusChat https://t.co/npmh8gCHNs |
| #LupusChat @Lupus_Chat RT @wordsbymj: I'm Michelle, in the PNW and #DiagnosticLimbo. Starting to feel the staying home. I don't know about the first, but I remember a looong ago cassette tape of the Annie soundtrack. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @thelupusrainbow: #LupusChat...I'm Jennifer @thelupusrainbow ...from Philadelphia, Fayetteville Ga and ATL...I'm a Patient Adocate and I love working on projects 👷♀️🏢📄and I love 👥...oh yeah I have Lupus 18 years + 💜💜💜 |
| Carly by Nature @SynceNerd_Carli A1: Honestly, I don't know of a chat that we've had that didn't resonate with me in some way. Even our Men's Health chat was helpful because I was able to be more cognizant of what the men in the community were feeling and use that to be a better advocate. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1: There was a #LupusChat discussion we had with @DrDavidLazar on interpreting our lab tests. That discussion helped educate me and ease some of my anxiety over my bloodwork results. |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. The #LupusChat conversation on disclosing at work came at the perfect time when I had some anxiety about a situation at work. I learned so much about protections and accommodations. |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @Lupus_Chat Hola #LupusChat! I'm Stephanie in Atlanta, and Lupus has lived with me 7+ years. Lionel Richie's Can't Slow Down was the first album I owned, and Boyz II Men Cooleyhighharmony was the first CD I owned. Both were gifts..and I'm telling my age 🤣😂 |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. I learned a lot from our #LupusChat with @SLeonMD about Nephritis and @DrDavidLazar about interpreting lab tests. These chats help me understand more about managing my disease. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. I also love so much from the #LupusChat #ChronicCoalition series. We get to collaborate and learn about other rheum/chronic conditions and come together as advocates. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A1: A1: There was a #LupusChat discussion we had with @DrDavidLazar on interpreting our lab tests. That discussion helped educate me and ease some of my anxiety over my bloodwork results. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A1: A1: Honestly, I don't know of a chat that we've had that didn't resonate with me in some way. Even our Men's Health chat was helpful because I was able to be more cognizant of what the men in the community were feeling and use that to be a better advocate. #LupusChat |
| Carly by Nature @SynceNerd_Carli @itsmorenamorena @Lupus_Chat Nobody is doing harmony like Boyz!! #LupusChat |
| Carly by Nature @SynceNerd_Carli A1: Honestamente, no hemos tenido una conversación que no me haya resonado de alguna manera. Incluso nuestro chat de Salud de los hombres fue útil porque pude ser más consciente de lo que sentían los hombres de la comunidad y usarlo para ser un mejor defensor. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Is everyone ready? Here comes Question 1! #LupusChat https://t.co/2m0Fhz6otf |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/i8x9gvp6KS |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: There was a #LupusChat discussion we had with @DrDavidLazar on interpreting our lab tests. That discussion helped educate me and ease some of my anxiety over my bloodwork results. |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Honestly, I don't know of a chat that we've had that didn't resonate with me in some way. Even our Men's Health chat was helpful because I was able to be more cognizant of what the men in the community were feeling and use that to be a better advocate. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1: Q1: Can you share ways that our chats have addressed topics relevant to your everyday life? #LupusChat https://t.co/npmh8gCHNs |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. I also love so much from the #LupusChat #ChronicCoalition series. We get to collaborate and learn about other rheum/chronic conditions and come together as advocates. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1: Q1: ¿Puedes compartir formas en que nuestros chats han abordado temas relevantes para tu vida cotidiana? #LupusChat https://t.co/uhW3fVvrmu |
 | Eman Rimawi-Doster @Eman_Rimawi RT @TiffanyAndLupus: A1: A1: There was a #LupusChat discussion we had with @DrDavidLazar on interpreting our lab tests. That discussion helped educate me and ease some of my anxiety over my bloodwork results. |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. The #LupusChat conversation on disclosing at work came at the perfect time when I had some anxiety about a situation at work. I learned so much about protections and accommodations. |
 | RaquelRoschell @raquelonpurpose @Lupus_Chat Hello! Raquel from Texas. Entrepreneur. First cassette tape I bought with my own money was Culture Club❤. I was crazy about Boy George and his voice. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. I learned a lot from our #LupusChat with @SLeonMD about Nephritis and @DrDavidLazar about interpreting lab tests. These chats help me understand more about managing my disease. |
| Carly by Nature @SynceNerd_Carli RT @wordsbymj: I'm Michelle, in the PNW and #DiagnosticLimbo. Starting to feel the staying home. I don't know about the first, but I remember a looong ago cassette tape of the Annie soundtrack. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat co-host from New York City. The rona is really doing a number on my anxiety levels. & the first CD I ever bought was RUFF RYDERS Volume III! https://t.co/ywQrf7FZ9b |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A1 I’m sure all of y’all lupies know what it’s like to have questions popping up in your head constantly and feeling scared to be alone in that. The #LupusChat topics and family has really helped me feel the opposite of being alone, and it’s helped me pull through this battle👏🏼 |
| Carly by Nature @SynceNerd_Carli A1: Some notable #LupusChat discussions were when we did Lab Results w/ @DrDavidLazar, Nephritis w/ @SLeonMD , #LupusResearchMatters w/ @NIH_NIAMS , Mental Health w/ @chrisalexander_ , and our chat for International Day of Disabled Persons. And ALL of our #ChronicCoalition chats. |
| Dawn M Gibson @DawnMGibson A1: #LupusChat always reminds me about the importance of #SelfCare. That's my biggest fight. Life has so many demands. My body can't always keep up. And the temptation to push harder is there... |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @xthina_etc: A1 I’m sure all of y’all lupies know what it’s like to have questions popping up in your head constantly and feeling scared to be alone in that. The #LupusChat topics and family has really helped me feel the opposite of being alone, and it’s helped me pull through this battle👏🏼 |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Honestamente, no hemos tenido una conversación que no me haya resonado de alguna manera. Incluso nuestro chat de Salud de los hombres fue útil porque pude ser más consciente de lo que sentían los hombres de la comunidad y usarlo para ser un mejor defensor. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat Hello! Raquel from Texas. Entrepreneur. First cassette tape I bought with my own money was Culture Club❤. I was crazy about Boy George and his voice. #LupusChat |
| itsmorenamorena @itsmorenamorena @Lupus_Chat A1: Research convo helped alleviate my worries about participating in trials and studies, pain mgt was great timing as I'd just had surgery; the topics always address something I've though about or am dealing with, and I appreciate the insight of the #LupusChat community. |
| Carly by Nature @SynceNerd_Carli @wordsbymj Thanks for joining us for #LupusChat today Michelle. 💜 |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Some notable #LupusChat discussions were when we did Lab Results w/ @DrDavidLazar, Nephritis w/ @SLeonMD , #LupusResearchMatters w/ @NIH_NIAMS , Mental Health w/ @chrisalexander_ , and our chat for International Day of Disabled Persons. And ALL of our #ChronicCoalition chats. |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1: A1: There was a #LupusChat discussion we had with @DrDavidLazar on interpreting our lab tests. That discussion helped educate me and ease some of my anxiety over my bloodwork results. |
| #LupusChat @Lupus_Chat RT @xthina_etc: A1 I’m sure all of y’all lupies know what it’s like to have questions popping up in your head constantly and feeling scared to be alone in that. The #LupusChat topics and family has really helped me feel the opposite of being alone, and it’s helped me pull through this battle👏🏼 |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. I also love so much from the #LupusChat #ChronicCoalition series. We get to collaborate and learn about other rheum/chronic conditions and come together as advocates. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @DawnMGibson: A1: A1: #LupusChat always reminds me about the importance of #SelfCare. That's my biggest fight. Life has so many demands. My body can't always keep up. And the temptation to push harder is there... |
| Carly by Nature @SynceNerd_Carli A1: Algunas discusiones notables de #LupusChat fueron cuando hicimos Lab Results con @DrDavidLazar, Nephritis w / @SLeonMD, #LupusResearchMatters w / @NIH_NIAMS, Mental Health w / @chrisalexander_, y nuestro chat para el Día Internacional de las Personas con Discapacidad. |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. I learned a lot from our #LupusChat with @SLeonMD about Nephritis and @DrDavidLazar about interpreting lab tests. These chats help me understand more about managing my disease. |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. I also love so much from the #LupusChat #ChronicCoalition series. We get to collaborate and learn about other rheum/chronic conditions and come together as advocates. |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: Honestly, I don't know of a chat that we've had that didn't resonate with me in some way. Even our Men's Health chat was helpful because I was able to be more cognizant of what the men in the community were feeling and use that to be a better advocate. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. The #LupusChat conversation on disclosing at work came at the perfect time when I had some anxiety about a situation at work. I learned so much about protections and accommodations. |
| itsmorenamorena @itsmorenamorena RT @SynceNerd_Carli: A1: A1: Some notable #LupusChat discussions were when we did Lab Results w/ @DrDavidLazar, Nephritis w/ @SLeonMD , #LupusResearchMatters w/ @NIH_NIAMS , Mental Health w/ @chrisalexander_ , and our chat for International Day of Disabled Persons. And ALL of our #ChronicCoalition chats. |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat Hello! Raquel from Texas. Entrepreneur. First cassette tape I bought with my own money was Culture Club❤. I was crazy about Boy George and his voice. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @xthina_etc: A1 I’m sure all of y’all lupies know what it’s like to have questions popping up in your head constantly and feeling scared to be alone in that. The #LupusChat topics and family has really helped me feel the opposite of being alone, and it’s helped me pull through this battle👏🏼 |
| Tiffany ⁷ @TiffanyAndLupus RT @wordsbymj: I'm Michelle, in the PNW and #DiagnosticLimbo. Starting to feel the staying home. I don't know about the first, but I remember a looong ago cassette tape of the Annie soundtrack. #LupusChat |
| Carly by Nature @SynceNerd_Carli A1: Y TODOS nuestros chats de #ChronicCoalition son geniales. #LupusChat |
| Carly by Nature @SynceNerd_Carli @delovelydes Thank you for this, Des. I’m so happy we’re able to provide this space for you. 💜 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: A1 I’m sure all of y’all lupies know what it’s like to have questions popping up in your head constantly and feeling scared to be alone in that. The #LupusChat topics and family has really helped me feel the opposite of being alone, and it’s helped me pull through this battle👏🏼 |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: Some notable #LupusChat discussions were when we did Lab Results w/ @DrDavidLazar, Nephritis w/ @SLeonMD , #LupusResearchMatters w/ @NIH_NIAMS , Mental Health w/ @chrisalexander_ , and our chat for International Day of Disabled Persons. And ALL of our #ChronicCoalition chats. |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat Hello! Raquel from Texas. Entrepreneur. First cassette tape I bought with my own money was Culture Club❤. I was crazy about Boy George and his voice. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @itsmorenamorena: @Lupus_Chat A1: @Lupus_Chat A1: Research convo helped alleviate my worries about participating in trials and studies, pain mgt was great timing as I'd just had surgery; the topics always address something I've though about or am dealing with, and I appreciate the insight of the #LupusChat community. |
| Tiffany ⁷ @TiffanyAndLupus RT @DawnMGibson: A1: A1: #LupusChat always reminds me about the importance of #SelfCare. That's my biggest fight. Life has so many demands. My body can't always keep up. And the temptation to push harder is there... |
 | nowyoucanheal @nowyoucanheal @Lupus_Chat Hi #LupusChat I'm Nychelle from the Boston area my first CD was Monica's The Boy Is Mine album. My doctor has been pushing me to take plaquenil #HCQ but with everything going on I'm afraid to start meds and then be in a compromised position because of #COVID19 |
| itsmorenamorena @itsmorenamorena @SynceNerd_Carli @Lupus_Chat Indeed. I still play that CD from time to time #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A1: I only had an Arthritis diagnosis when I found this chat. It helped educate and encourage me. I have learned so much. #LupusChat |
| #LupusChat @Lupus_Chat RT @DawnMGibson: A1: A1: #LupusChat always reminds me about the importance of #SelfCare. That's my biggest fight. Life has so many demands. My body can't always keep up. And the temptation to push harder is there... |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat A1: @Lupus_Chat A1: Research convo helped alleviate my worries about participating in trials and studies, pain mgt was great timing as I'd just had surgery; the topics always address something I've though about or am dealing with, and I appreciate the insight of the #LupusChat community. |
 | 👍 @Alchemy363 RT @DawnMGibson: A1: A1: #LupusChat always reminds me about the importance of #SelfCare. That's my biggest fight. Life has so many demands. My body can't always keep up. And the temptation to push harder is there... |
| #LupusChat @Lupus_Chat Nos alegra saber que estas discusiones sobre #LupusChat han sido relevantes para su vida de muchas maneras. Para la pregunta 2, comencemos a explorar cómo han influido en las formas en que abogamos por nosotros mismos. https://t.co/vJjmICYxeL |
| #LupusChat @Lupus_Chat We are happy to hear that these #LupusChat discussions have been relevant to your life in many ways. For Question 2, let’s begin to explore how they’ve influenced the ways we advocate for ourselves. https://t.co/LZd4X9Gu0J |
| Carly by Nature @SynceNerd_Carli @raquelonpurpose @Lupus_Chat Welcome back Raquel!! We appreciate you being a #LupusChat rider!💜💜 |
| #LupusChat @Lupus_Chat RT @paigesofmetoo: @Lupus_Chat Hi #LupusChat I'm Nychelle from the Boston area my first CD was Monica's The Boy Is Mine album. My doctor has been pushing me to take plaquenil #HCQ but with everything going on I'm afraid to start meds and then be in a compromised position because of #COVID19 |
| Carly by Nature @SynceNerd_Carli RT @xthina_etc: A1 I’m sure all of y’all lupies know what it’s like to have questions popping up in your head constantly and feeling scared to be alone in that. The #LupusChat topics and family has really helped me feel the opposite of being alone, and it’s helped me pull through this battle👏🏼 |
| Tiffany ⁷ @TiffanyAndLupus RT @paigesofmetoo: @Lupus_Chat Hi #LupusChat I'm Nychelle from the Boston area my first CD was Monica's The Boy Is Mine album. My doctor has been pushing me to take plaquenil #HCQ but with everything going on I'm afraid to start meds and then be in a compromised position because of #COVID19 |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat A1: @Lupus_Chat A1: Research convo helped alleviate my worries about participating in trials and studies, pain mgt was great timing as I'd just had surgery; the topics always address something I've though about or am dealing with, and I appreciate the insight of the #LupusChat community. |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: We are happy to hear that these #LupusChat discussions have been relevant to your life in many ways. For Question 2, let’s begin to explore how they’ve influenced the ways we advocate for ourselves. https://t.co/LZd4X9Gu0J |
| #LupusChat @Lupus_Chat Q2: Después de varias #LupusChat discusiones sobre la apertura, ¿se siente más cómodo al dejar que otros a su alrededor sepan cuáles son sus necesidades? ¿Qué te haría sentir más cómodo? https://t.co/dNYtqcXaiX |
| #LupusChat @Lupus_Chat Q2: After several #LupusChat discussions on opening up, do you feel more comfortable letting others around you know what your needs are? What would make you more comfortable? https://t.co/vyIMUgwBUQ |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A1. The #LupusChat conversation on disclosing at work came at the perfect time when I had some anxiety about a situation at work. I learned so much about protections and accommodations. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2: Q2: After several #LupusChat discussions on opening up, do you feel more comfortable letting others around you know what your needs are? What would make you more comfortable? https://t.co/vyIMUgwBUQ |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q2: Q2: After several #LupusChat discussions on opening up, do you feel more comfortable letting others around you know what your needs are? What would make you more comfortable? https://t.co/vyIMUgwBUQ |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A1: A1: There was a #LupusChat discussion we had with @DrDavidLazar on interpreting our lab tests. That discussion helped educate me and ease some of my anxiety over my bloodwork results. |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A1. I learned a lot from our #LupusChat with @SLeonMD about Nephritis and @DrDavidLazar about interpreting lab tests. These chats help me understand more about managing my disease. |
| Friends AgainstLupus @AgainstLupus RT @SynceNerd_Carli: A1: A1: Honestly, I don't know of a chat that we've had that didn't resonate with me in some way. Even our Men's Health chat was helpful because I was able to be more cognizant of what the men in the community were feeling and use that to be a better advocate. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A1. I also love so much from the #LupusChat #ChronicCoalition series. We get to collaborate and learn about other rheum/chronic conditions and come together as advocates. |
| Dawn M Gibson @DawnMGibson RT @Lupus_Chat: Q2: Q2: After several #LupusChat discussions on opening up, do you feel more comfortable letting others around you know what your needs are? What would make you more comfortable? https://t.co/vyIMUgwBUQ |
| Friends AgainstLupus @AgainstLupus RT @xthina_etc: A1 I’m sure all of y’all lupies know what it’s like to have questions popping up in your head constantly and feeling scared to be alone in that. The #LupusChat topics and family has really helped me feel the opposite of being alone, and it’s helped me pull through this battle👏🏼 |
| RaquelRoschell @raquelonpurpose RT @paigesofmetoo: @Lupus_Chat Hi #LupusChat I'm Nychelle from the Boston area my first CD was Monica's The Boy Is Mine album. My doctor has been pushing me to take plaquenil #HCQ but with everything going on I'm afraid to start meds and then be in a compromised position because of #COVID19 |
| Friends AgainstLupus @AgainstLupus RT @DawnMGibson: A1: A1: #LupusChat always reminds me about the importance of #SelfCare. That's my biggest fight. Life has so many demands. My body can't always keep up. And the temptation to push harder is there... |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: We are happy to hear that these #LupusChat discussions have been relevant to your life in many ways. For Question 2, let’s begin to explore how they’ve influenced the ways we advocate for ourselves. https://t.co/LZd4X9Gu0J |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q2: Q2: After several #LupusChat discussions on opening up, do you feel more comfortable letting others around you know what your needs are? What would make you more comfortable? https://t.co/vyIMUgwBUQ |
| Carly by Nature @SynceNerd_Carli @xthina_etc Thank you for sharing this Thina! We really work hard to provide a safe, honest, and *real* space for our community. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A1: @Lupus_Chat A1: I only had an Arthritis diagnosis when I found this chat. It helped educate and encourage me. I have learned so much. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DawnMGibson: A1: A1: #LupusChat always reminds me about the importance of #SelfCare. That's my biggest fight. Life has so many demands. My body can't always keep up. And the temptation to push harder is there... |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: We are happy to hear that these #LupusChat discussions have been relevant to your life in many ways. For Question 2, let’s begin to explore how they’ve influenced the ways we advocate for ourselves. https://t.co/LZd4X9Gu0J |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q2: Q2: After several #LupusChat discussions on opening up, do you feel more comfortable letting others around you know what your needs are? What would make you more comfortable? https://t.co/vyIMUgwBUQ |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. I am learning to be more open to myself and others about my needs, and also about keeping realistic expectations. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A2: Since learning how to recognize when I’m in need of help, I have been able to voice my needs better with my loved ones. I still have days when I forget that “help” is even an option…...baby steps. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. I don’t think I’m all the way there yet, esp in terms of vocalizing my needs to my own family on a daily basis. But I’m trying. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2. I am learning to be more open to myself and others about my needs, and also about keeping realistic expectations. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: Since learning how to recognize when I’m in need of help, I have been able to voice my needs better with my loved ones. I still have days when I forget that “help” is even an option…...baby steps. #LupusChat |
| Carly by Nature @SynceNerd_Carli @DawnMGibson First, Thanks for joining us today, Dawn. Secondly, I’m glad we’re helping you to spend time loving on you, because it’s important. You know we have nothing but love your you 💜💜 #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A2: A2: Since learning how to recognize when I’m in need of help, I have been able to voice my needs better with my loved ones. I still have days when I forget that “help” is even an option…...baby steps. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A2: I know it sounds silly, but sometimes I forget that asking for help is an option I have. I forget that I don’t have to struggle or suffer indefinitely. It helps that my friends and loved ones can tell when I’m in need and ask how they can assist me. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2. I don’t think I’m all the way there yet, esp in terms of vocalizing my needs to my own family on a daily basis. But I’m trying. #LupusChat |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 Q2 I’ve noticed that learning how to reveal vulnerabilities to others who I know will understand where I’m coming from has made me much more confident in sharing my vulnerabilities loud and proud with everyone else😃 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @Lupus_Chat A1: @Lupus_Chat A1: Research convo helped alleviate my worries about participating in trials and studies, pain mgt was great timing as I'd just had surgery; the topics always address something I've though about or am dealing with, and I appreciate the insight of the #LupusChat community. |
| Dawn M Gibson @DawnMGibson RT @SynceNerd_Carli: @DawnMGibson First, Thanks for joining us today, Dawn. Secondly, I’m glad we’re helping you to spend time loving on you, because it’s important. You know we have nothing but love your you 💜💜 #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: I know it sounds silly, but sometimes I forget that asking for help is an option I have. I forget that I don’t have to struggle or suffer indefinitely. It helps that my friends and loved ones can tell when I’m in need and ask how they can assist me. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @xthina_etc: Q2 I’ve noticed that learning how to reveal vulnerabilities to others who I know will understand where I’m coming from has made me much more confident in sharing my vulnerabilities loud and proud with everyone else😃 #LupusChat |
| #LupusChat @Lupus_Chat RT @xthina_etc: Q2 I’ve noticed that learning how to reveal vulnerabilities to others who I know will understand where I’m coming from has made me much more confident in sharing my vulnerabilities loud and proud with everyone else😃 #LupusChat |
| Carly by Nature @SynceNerd_Carli @itsmorenamorena @Lupus_Chat We appreciate YOU, Stephanie! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2. I am learning to be more open to myself and others about my needs, and also about keeping realistic expectations. #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A2 : Yes, I feel more comfortable. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: I'm still working on opening up more. I'm not great at it but that is more to do with how I'm built as a person than anything to do with Lupus or stigma. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @paigesofmetoo: @Lupus_Chat Hi #LupusChat I'm Nychelle from the Boston area my first CD was Monica's The Boy Is Mine album. My doctor has been pushing me to take plaquenil #HCQ but with everything going on I'm afraid to start meds and then be in a compromised position because of #COVID19 |
 | rob @robcuzican RT @xthina_etc: Q2 I’ve noticed that learning how to reveal vulnerabilities to others who I know will understand where I’m coming from has made me much more confident in sharing my vulnerabilities loud and proud with everyone else😃 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A1: @Lupus_Chat A1: I only had an Arthritis diagnosis when I found this chat. It helped educate and encourage me. I have learned so much. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @xthina_etc This is so awesome. And so very well said! #LupusChat |
| Dawn M Gibson @DawnMGibson RT @raquelonpurpose: @Lupus_Chat Hello! Raquel from Texas. Entrepreneur. First cassette tape I bought with my own money was Culture Club❤. I was crazy about Boy George and his voice. #LupusChat |
| Dawn M Gibson @DawnMGibson RT @TiffanyAndLupus: A1: A1: There was a #LupusChat discussion we had with @DrDavidLazar on interpreting our lab tests. That discussion helped educate me and ease some of my anxiety over my bloodwork results. |
| nowyoucanheal @nowyoucanheal @Lupus_Chat A2. #lupuschat ever since I had my worst flare in 2016 I try my best to speak up when I need things. I used to expect those around me to know what I needed because they were around but sometimes people need to hear you ask for help. |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : Yes, I feel more comfortable. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: I'm still working on opening up more. I'm not great at it but that is more to do with how I'm built as a person than anything to do with Lupus or stigma. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: Todavía estoy trabajando para abrir más. No soy bueno en eso, pero eso tiene más que ver con la forma en que soy construido como persona que con el lupus o el estigma. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: Todavía estoy trabajando para abrir más. No soy bueno en eso, pero eso tiene más que ver con la forma en que me construyo como persona que con el lupus o el estigma. #LupusChat |
| #LupusChat @Lupus_Chat Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/2ooRvS0khv |
| #LupusChat @Lupus_Chat Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/zLp8qZn756 |
| The Lupus Rainbow @thelupusrainbow #LupusChat A1: This chat is the truth. There have been so many different subjects thay have been addressed. Such as; medications, best practices and current issues affecting the lupus community |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A2: A2: I'm still working on opening up more. I'm not great at it but that is more to do with how I'm built as a person than anything to do with Lupus or stigma. #LupusChat |
| #LupusChat @Lupus_Chat RT @paigesofmetoo: @Lupus_Chat A2. #lupuschat ever since I had my worst flare in 2016 I try my best to speak up when I need things. I used to expect those around me to know what I needed because they were around but sometimes people need to hear you ask for help. |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: Todavía estoy trabajando para abrir más. No soy bueno en eso, pero eso tiene más que ver con la forma en que me construyo como persona que con el lupus o el estigma. #LupusChat |
| #LupusChat @Lupus_Chat RT @thelupusrainbow: #LupusChat A1: #LupusChat A1: This chat is the truth. There have been so many different subjects thay have been addressed. Such as; medications, best practices and current issues affecting the lupus community |
| Carly by Nature @SynceNerd_Carli @paigesofmetoo @Lupus_Chat Hi Nychelle. Thanks for joining #LupusChat 1) I wore that album ouuutttt. 2) I’m going to link something to you about HCQ and COVID19. 💜 |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A2: A2: Todavía estoy trabajando para abrir más. No soy bueno en eso, pero eso tiene más que ver con la forma en que me construyo como persona que con el lupus o el estigma. #LupusChat |
 | Arike ~ 🏳️🌈💜💚🖤 @WiltingBlkRose RT @Xtel007: A2. I am learning to be more open to myself and others about my needs, and also about keeping realistic expectations. #LupusChat |
| #LupusChat @Lupus_Chat Abogar por nosotros mismos es útil cuando nos enfrentamos a situaciones sociales difíciles. Examinemos esto más en la Pregunta 3. #LupusChat https://t.co/kdpqmHDBaG |
| #LupusChat @Lupus_Chat Advocating for ourselves is helpful when faced with difficult social situations. Let’s examine this more in Question 3. #LupusChat https://t.co/Kkyndw8log |
| Michelle @wordsbymj @delovelydes A1. This. #LupusChat is one of a handful of twitter chats where we can be open about living with #ChronicIllness. While I'm still in #DiagnosticLimbo, the constellation of lupus symptoms often overlaps with my own. I value hearing everyone's experiences and thoughts. |
| itsmorenamorena @itsmorenamorena @Lupus_Chat A2: When I feel unable to handle things on my own, yes. I still struggle with trusting others, but I'm better at asking for accommodations and stating why I can't or won't do things. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: When I feel unable to handle things on my own, yes. I still struggle with trusting others, but I'm better at asking for accommodations and stating why I can't or won't do things. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @delovelydes Yea the guilt is a hard thing to get past. Then we end up hurting ourselves trying to compensate. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @wordsbymj: @delovelydes A1. This. #LupusChat is one of a handful of twitter chats where we can be open about living with #ChronicIllness. While I'm still in #DiagnosticLimbo, the constellation of lupus symptoms often overlaps with my own. I value hearing everyone's experiences and thoughts. |
| itsmorenamorena @itsmorenamorena RT @thelupusrainbow: #LupusChat A1: #LupusChat A1: This chat is the truth. There have been so many different subjects thay have been addressed. Such as; medications, best practices and current issues affecting the lupus community |
| Friends AgainstLupus @AgainstLupus RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: When I feel unable to handle things on my own, yes. I still struggle with trusting others, but I'm better at asking for accommodations and stating why I can't or won't do things. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @wordsbymj: @delovelydes A1. This. #LupusChat is one of a handful of twitter chats where we can be open about living with #ChronicIllness. While I'm still in #DiagnosticLimbo, the constellation of lupus symptoms often overlaps with my own. I value hearing everyone's experiences and thoughts. |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Advocating for ourselves is helpful when faced with difficult social situations. Let’s examine this more in Question 3. #LupusChat https://t.co/Kkyndw8log |
| #LupusChat @Lupus_Chat Q3: Reflexionando sobre nuestras discusiones de #LupusChat sobre socialización y aislamiento, ¿cómo cambió con respecto a lidiar con situaciones sociales? https://t.co/ksKbAWzeDJ |
| #LupusChat @Lupus_Chat Q3: Reflecting on our #LupusChat discussions about socializing and isolation, in what ways have you changed with regards to navigating social situations? https://t.co/VJ2UrQGGGb |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A2. I am learning to be more open to myself and others about my needs, and also about keeping realistic expectations. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Advocating for ourselves is helpful when faced with difficult social situations. Let’s examine this more in Question 3. #LupusChat https://t.co/Kkyndw8log |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q3: Q3: Reflecting on our #LupusChat discussions about socializing and isolation, in what ways have you changed with regards to navigating social situations? https://t.co/VJ2UrQGGGb |
| Carly by Nature @SynceNerd_Carli @paigesofmetoo @Lupus_Chat Nychelle, please take a look through this thread. The decision is ultimately yours to make, but may be helpful. 💜 #LupusChat https://t.co/yYwi02sKMY |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q3: Q3: Reflecting on our #LupusChat discussions about socializing and isolation, in what ways have you changed with regards to navigating social situations? https://t.co/VJ2UrQGGGb |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q3: Q3: Reflecting on our #LupusChat discussions about socializing and isolation, in what ways have you changed with regards to navigating social situations? https://t.co/VJ2UrQGGGb |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q3: Q3: Reflexionando sobre nuestras discusiones de #LupusChat sobre socialización y aislamiento, ¿cómo cambió con respecto a lidiar con situaciones sociales? https://t.co/ksKbAWzeDJ |
| Dawn M Gibson @DawnMGibson RT @Lupus_Chat: Q3: Q3: Reflecting on our #LupusChat discussions about socializing and isolation, in what ways have you changed with regards to navigating social situations? https://t.co/VJ2UrQGGGb |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A1: @Lupus_Chat A1: I only had an Arthritis diagnosis when I found this chat. It helped educate and encourage me. I have learned so much. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Nos alegra saber que estas discusiones sobre #LupusChat han sido relevantes para su vida de muchas maneras. Para la pregunta 2, comencemos a explorar cómo han influido en las formas en que abogamos por nosotros mismos. https://t.co/vJjmICYxeL |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: We are happy to hear that these #LupusChat discussions have been relevant to your life in many ways. For Question 2, let’s begin to explore how they’ve influenced the ways we advocate for ourselves. https://t.co/LZd4X9Gu0J |
| #LupusChat @Lupus_Chat RT @wordsbymj: @delovelydes A1. This. #LupusChat is one of a handful of twitter chats where we can be open about living with #ChronicIllness. While I'm still in #DiagnosticLimbo, the constellation of lupus symptoms often overlaps with my own. I value hearing everyone's experiences and thoughts. |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: When I feel unable to handle things on my own, yes. I still struggle with trusting others, but I'm better at asking for accommodations and stating why I can't or won't do things. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2: Q2: After several #LupusChat discussions on opening up, do you feel more comfortable letting others around you know what your needs are? What would make you more comfortable? https://t.co/vyIMUgwBUQ |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2: Q2: Después de varias #LupusChat discusiones sobre la apertura, ¿se siente más cómodo al dejar que otros a su alrededor sepan cuáles son sus necesidades? ¿Qué te haría sentir más cómodo? https://t.co/dNYtqcXaiX |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. As we continue these #LupusChat discussions and as I become a stronger advocate, I’m more comfortable taking part or leaving social situations depending on my wants/needs. |
| The Lupus Rainbow @thelupusrainbow #LupusChat A2: it's great forum to share. I've always felt free to express...but rhere.have been subjects that have https://t.co/vaF9cz8GMe 🤔 😪 and 🙄 |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Advocating for ourselves is helpful when faced with difficult social situations. Let’s examine this more in Question 3. #LupusChat https://t.co/Kkyndw8log |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q3: Q3: Reflecting on our #LupusChat discussions about socializing and isolation, in what ways have you changed with regards to navigating social situations? https://t.co/VJ2UrQGGGb |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. I’m much more comfortable (I try anyway) with my limits/needs in social situations. For example, if we’re hanging out and I need to sit, I just.. Sit. I try to worry less about people’s judgement. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A2: A2: Since learning how to recognize when I’m in need of help, I have been able to voice my needs better with my loved ones. I still have days when I forget that “help” is even an option…...baby steps. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2. I am learning to be more open to myself and others about my needs, and also about keeping realistic expectations. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2. I don’t think I’m all the way there yet, esp in terms of vocalizing my needs to my own family on a daily basis. But I’m trying. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A2: A2: I know it sounds silly, but sometimes I forget that asking for help is an option I have. I forget that I don’t have to struggle or suffer indefinitely. It helps that my friends and loved ones can tell when I’m in need and ask how they can assist me. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A3. As we continue these #LupusChat discussions and as I become a stronger advocate, I’m more comfortable taking part or leaving social situations depending on my wants/needs. |
| #LupusChat @Lupus_Chat RT @thelupusrainbow: #LupusChat A2: #LupusChat A2: it's great forum to share. I've always felt free to express...but rhere.have been subjects that have https://t.co/vaF9cz8GMe 🤔 😪 and 🙄 |
| RaquelRoschell @raquelonpurpose RT @thelupusrainbow: #LupusChat A1: #LupusChat A1: This chat is the truth. There have been so many different subjects thay have been addressed. Such as; medications, best practices and current issues affecting the lupus community |
| #LupusChat @Lupus_Chat RT @Xtel007: A3. I’m much more comfortable (I try anyway) with my limits/needs in social situations. For example, if we’re hanging out and I need to sit, I just.. Sit. I try to worry less about people’s judgement. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @paigesofmetoo: @Lupus_Chat A2. #lupuschat ever since I had my worst flare in 2016 I try my best to speak up when I need things. I used to expect those around me to know what I needed because they were around but sometimes people need to hear you ask for help. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/2ooRvS0khv |
| Carly by Nature @SynceNerd_Carli RT @SynceNerd_Carli: Just a reminder: Just a reminder: It's #LupusChat Sunday! So YOU ALREADY KNOW, for the next hour and change its all Lupus everything over here. Mute as needed or come learn. Whatever works for you. https://t.co/mAB2VqQgDP |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @delovelydes You are so right about that. We can still find ways to be present and enjoy things. Glad we both found some. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. As we continue these #LupusChat discussions and as I become a stronger advocate, I’m more comfortable taking part or leaving social situations depending on my wants/needs. |
| Carly by Nature @SynceNerd_Carli RT @thelupusrainbow: #LupusChat A2: #LupusChat A2: it's great forum to share. I've always felt free to express...but rhere.have been subjects that have https://t.co/vaF9cz8GMe 🤔 😪 and 🙄 |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q3: Q3: Reflecting on our #LupusChat discussions about socializing and isolation, in what ways have you changed with regards to navigating social situations? https://t.co/VJ2UrQGGGb |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. I’m much more comfortable (I try anyway) with my limits/needs in social situations. For example, if we’re hanging out and I need to sit, I just.. Sit. I try to worry less about people’s judgement. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @delovelydes You are so right about that. We can still find ways to be present and enjoy things. Glad we both found some. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/2ooRvS0khv |
| Michelle @wordsbymj @xthina_etc A2. I love this. So true. (Cog deficits have been esp bad lately, so I'm grateful to be able to answer questions by echoing others' eloquent comments!) #LupusChat |
 | Little Miss Rogers @BbygrlRogers @DawnMGibson @Lupus_Chat A1: The topics have led to solutions I had not previously considered.#lupus_chat #Lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A3. I’m much more comfortable (I try anyway) with my limits/needs in social situations. For example, if we’re hanging out and I need to sit, I just.. Sit. I try to worry less about people’s judgement. #LupusChat |
| Carly by Nature @SynceNerd_Carli @bgdecolonized Thanks for joining #LupusChat today Luann! 💜 |
| Carly by Nature @SynceNerd_Carli RT @wordsbymj: @xthina_etc A2. I love this. So true. (Cog deficits have been esp bad lately, so I'm grateful to be able to answer questions by echoing others' eloquent comments!) #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @BbygrlRogers: @DawnMGibson @Lupus_Chat A1: @DawnMGibson @Lupus_Chat A1: The topics have led to solutions I had not previously considered.#lupus_chat #Lupuschat |
| #LupusChat @Lupus_Chat RT @wordsbymj: @xthina_etc A2. I love this. So true. (Cog deficits have been esp bad lately, so I'm grateful to be able to answer questions by echoing others' eloquent comments!) #LupusChat |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A3 I’ve learned to put more awareness with being more prepared for all social events (commute, environment of the place, how many people would be attending, and what I’d need to keep me comfortable while being there) #LupusChat |
| Carly by Nature @SynceNerd_Carli @BbygrlRogers @DawnMGibson @Lupus_Chat We’re happy to hear this and happy to help! 💜#LupusChat |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @DawnMGibson @Lupus_Chat A1: @DawnMGibson @Lupus_Chat A1: The topics have led to solutions I had not previously considered.#lupus_chat #Lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @bgdecolonized So glad you ca get some insights from our conversations :) #LupusChat |
| #LupusChat @Lupus_Chat RT @xthina_etc: A3 I’ve learned to put more awareness with being more prepared for all social events (commute, environment of the place, how many people would be attending, and what I’d need to keep me comfortable while being there) #LupusChat |
| Carly by Nature @SynceNerd_Carli A1: #LupusChat 👇🏾👇🏾👇🏾 |
| Carly by Nature @SynceNerd_Carli @alyesia_ I’m so happy we’ve helped in some way. I’m also glad that we’ve been able to help you share things in ways that friends can understand. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @xthina_etc: A3 I’ve learned to put more awareness with being more prepared for all social events (commute, environment of the place, how many people would be attending, and what I’d need to keep me comfortable while being there) #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @bgdecolonized So glad you ca get some insights from our conversations :) #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @xthina_etc: A3 I’ve learned to put more awareness with being more prepared for all social events (commute, environment of the place, how many people would be attending, and what I’d need to keep me comfortable while being there) #LupusChat |
| #LupusChat @Lupus_Chat Parece que muchos de ustedes escuchan más a su cuerpo y se han convertido en mejores defensores de sí mismos al socializar. Para la pregunta 4, veremos cómo se traduce eso en términos de nuestra administración de la atención. #LupusChat https://t.co/L9WqyurT7M |
| #LupusChat @Lupus_Chat It seems many of you listen to your body more and have become better self-advocates when socializing. For Question 4, we’ll see how that translates in terms of our care management. #LupusChat https://t.co/8s5SOe7Npf |
| Tiffany ⁷ @TiffanyAndLupus RT @BbygrlRogers: @DawnMGibson @Lupus_Chat A1: @DawnMGibson @Lupus_Chat A1: The topics have led to solutions I had not previously considered.#lupus_chat #Lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @wordsbymj: @xthina_etc A2. I love this. So true. (Cog deficits have been esp bad lately, so I'm grateful to be able to answer questions by echoing others' eloquent comments!) #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: It seems many of you listen to your body more and have become better self-advocates when socializing. For Question 4, we’ll see how that translates in terms of our care management. #LupusChat https://t.co/8s5SOe7Npf |
| #LupusChat @Lupus_Chat Q4: How did #LupusChat conversations on collaborative partnerships change your approach with your healthcare providers? https://t.co/bPOCTRGCSW |
| #LupusChat @Lupus_Chat Q4: ¿Cómo cambió #LupusChat conversaciones sobre asociaciones colaborativas su enfoque con sus proveedores de atención médica? https://t.co/pjTuOxJXIy |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: It seems many of you listen to your body more and have become better self-advocates when socializing. For Question 4, we’ll see how that translates in terms of our care management. #LupusChat https://t.co/8s5SOe7Npf |
| Carly by Nature @SynceNerd_Carli @delovelydes @Lupus_Chat I here to affirm your feelings. If you don’t mind sharing, Would you have changed the experience in any way? If so, how? Would these changes have served you best? It’s important to sit with our feelings and then evaluate. 💜 #LupusChat |
| Dawn M Gibson @DawnMGibson RT @Lupus_Chat: Q4: Q4: How did #LupusChat conversations on collaborative partnerships change your approach with your healthcare providers? https://t.co/bPOCTRGCSW |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Parece que muchos de ustedes escuchan más a su cuerpo y se han convertido en mejores defensores de sí mismos al socializar. Para la pregunta 4, veremos cómo se traduce eso en términos de nuestra administración de la atención. #LupusChat https://t.co/L9WqyurT7M |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: It seems many of you listen to your body more and have become better self-advocates when socializing. For Question 4, we’ll see how that translates in terms of our care management. #LupusChat https://t.co/8s5SOe7Npf |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4: Q4: ¿Cómo cambió #LupusChat conversaciones sobre asociaciones colaborativas su enfoque con sus proveedores de atención médica? https://t.co/pjTuOxJXIy |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4: Q4: How did #LupusChat conversations on collaborative partnerships change your approach with your healthcare providers? https://t.co/bPOCTRGCSW |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q4: Q4: How did #LupusChat conversations on collaborative partnerships change your approach with your healthcare providers? https://t.co/bPOCTRGCSW |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q4: Q4: How did #LupusChat conversations on collaborative partnerships change your approach with your healthcare providers? https://t.co/bPOCTRGCSW |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q4: Q4: ¿Cómo cambió #LupusChat conversaciones sobre asociaciones colaborativas su enfoque con sus proveedores de atención médica? https://t.co/pjTuOxJXIy |
| Tiffany ⁷ @TiffanyAndLupus A4: #LupusChat conversations on collaborative partnerships helped me prepare for my doctor appointments. I write a list of questions beforehand and ask them during my visit. I feel more confidant as an equal partner in my treatment plan. |
| Little Miss Rogers @BbygrlRogers @xthina_etc @SynceNerd_Carli Lydia from California and I enjoy baking. I think my first cassette was Anita Baker. I’m into smooth sounds😎#LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: #LupusChat conversations on collaborative partnerships helped me prepare for my doctor appointments. I write a list of questions beforehand and ask them during my visit. I feel more confidant as an equal partner in my treatment plan. |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @xthina_etc @SynceNerd_Carli Lydia from California and I enjoy baking. I think my first cassette was Anita Baker. I’m into smooth sounds😎#LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @BbygrlRogers: @xthina_etc @SynceNerd_Carli Lydia from California and I enjoy baking. I think my first cassette was Anita Baker. I’m into smooth sounds😎#LupusChat |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A4: A4: #LupusChat conversations on collaborative partnerships helped me prepare for my doctor appointments. I write a list of questions beforehand and ask them during my visit. I feel more confidant as an equal partner in my treatment plan. |
| Friends AgainstLupus @AgainstLupus RT @BbygrlRogers: @xthina_etc @SynceNerd_Carli Lydia from California and I enjoy baking. I think my first cassette was Anita Baker. I’m into smooth sounds😎#LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A4: A4: #LupusChat conversations on collaborative partnerships helped me prepare for my doctor appointments. I write a list of questions beforehand and ask them during my visit. I feel more confidant as an equal partner in my treatment plan. |
| Little Miss Rogers @BbygrlRogers @Lupus_Chat I owned that Walkman!#LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4: Q4: How did #LupusChat conversations on collaborative partnerships change your approach with your healthcare providers? https://t.co/bPOCTRGCSW |
| Tiffany ⁷ @TiffanyAndLupus @wordsbymj @BbygrlRogers @Lupus_Chat Me three! 😂 #LupusChat |
| #LupusChat @Lupus_Chat A menudo es difícil controlar los niveles de estrés en tiempos de crisis. En la pregunta 5, discutiremos las formas en que nos las arreglamos durante los momentos difíciles. #LupusChat https://t.co/gS7FN0XbeM |
| #LupusChat @Lupus_Chat It is often difficult to manage stress levels during times of crisis. In Question 5, we will discuss the ways we cope during trying times. #LupusChat https://t.co/svjN0nlAkq |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. These conversations make me a better patient, because I make a more conscious effort to update all my specialists and what’s going on with my other specialists. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: It is often difficult to manage stress levels during times of crisis. In Question 5, we will discuss the ways we cope during trying times. #LupusChat https://t.co/svjN0nlAkq |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: It is often difficult to manage stress levels during times of crisis. In Question 5, we will discuss the ways we cope during trying times. #LupusChat https://t.co/svjN0nlAkq |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. It’s important to remember that your various symptoms can be related, and so make sure to mention them, even if you think it’s directly related to your HCP’s specialty. #LupusChat |
| #LupusChat @Lupus_Chat Q5: ¿Cómo se está manejando y cuidando durante la crisis #COVID19, y nuestras discusiones sobre el cuidado personal y la salud mental ayudaron en algo? #LupusChat https://t.co/ZbstuY8VRs |
| #LupusChat @Lupus_Chat Q5: How are you coping and taking care of yourself during the #COVID19 crisis, and have our discussions on self-care and mental health helped at all? #LupusChat https://t.co/sJXlYppQsc |
| Little Miss Rogers @BbygrlRogers @Lupus_Chat A2: This has been great space to just belong. I don’t have difficulty discussing my health but have difficulty finding others that want to listen and sometimes I just need an ear. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @BbygrlRogers: @Lupus_Chat A2: @Lupus_Chat A2: This has been great space to just belong. I don’t have difficulty discussing my health but have difficulty finding others that want to listen and sometimes I just need an ear. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. It’s important to remember that your various symptoms can be related, and so make sure to mention them, even if you think it’s directly related to your HCP’s specialty. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A4. It’s important to remember that your various symptoms can be related, and so make sure to mention them, even if you think it’s directly related to your HCP’s specialty. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @BbygrlRogers: @Lupus_Chat A2: @Lupus_Chat A2: This has been great space to just belong. I don’t have difficulty discussing my health but have difficulty finding others that want to listen and sometimes I just need an ear. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A4: A4: #LupusChat conversations on collaborative partnerships helped me prepare for my doctor appointments. I write a list of questions beforehand and ask them during my visit. I feel more confidant as an equal partner in my treatment plan. |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. These conversations make me a better patient, because I make a more conscious effort to update all my specialists and what’s going on with my other specialists. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. It’s important to remember that your various symptoms can be related, and so make sure to mention them, even if you think it’s directly related to your HCP’s specialty. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: It is often difficult to manage stress levels during times of crisis. In Question 5, we will discuss the ways we cope during trying times. #LupusChat https://t.co/svjN0nlAkq |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q5: Q5: How are you coping and taking care of yourself during the #COVID19 crisis, and have our discussions on self-care and mental health helped at all? #LupusChat https://t.co/sJXlYppQsc |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @Lupus_Chat A2: @Lupus_Chat A2: This has been great space to just belong. I don’t have difficulty discussing my health but have difficulty finding others that want to listen and sometimes I just need an ear. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q5: Q5: How are you coping and taking care of yourself during the #COVID19 crisis, and have our discussions on self-care and mental health helped at all? #LupusChat https://t.co/sJXlYppQsc |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. I’ve been doing my best to stay calm and not stress too much (with shows, cooking, snacking). Everyone here is taking precaution as well. #LupusChat |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A4 it’s helped me learn to appreciate the ones who are really there for you and to learn how to be patient with finding answers and treatment plans. It’s also helped me learn how to COMMUNICATE and that that’s very important for us to have that👍🏽 #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. But I can’t pretend I’m not worried, about 1) the people not taking it seriously now, and 2) what it’ll mean for at-risk people when things start back up again. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: It’s been difficult to unplug. I find myself surfing the web for updates on the #COVID19 crisis, which has been tough on my anxiety. It’s scary because I’m immunocompromised! I’m taking all the precautions to stay safe. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. Thinking of the #LupusChat discussions on self-care give me more motivation to find at home activities that are relaxing and make me feel good |
| itsmorenamorena @itsmorenamorena @Lupus_Chat A3: I advocate for my comfort. Even before #Coronavirus, I kept away from folks that were ill, and situations that would trigger flares. One benefit of the time we are in now is the acceptance of virtual socializing! Brunches, Happy Hours, Clubbing all week long #LupusChat |
| Carly by Nature @SynceNerd_Carli @delovelydes @Lupus_Chat Thanks for sharing. I’d like to think you weren’t helpless at all. In fact, it was more helpful that you stayed outside. Had you gone in, you & hubby would’ve worried. The best thing was to stay out for your safety &keep you healthy enough to help in other ways later #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A5: A5: It’s been difficult to unplug. I find myself surfing the web for updates on the #COVID19 crisis, which has been tough on my anxiety. It’s scary because I’m immunocompromised! I’m taking all the precautions to stay safe. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @BbygrlRogers: @xthina_etc @SynceNerd_Carli Lydia from California and I enjoy baking. I think my first cassette was Anita Baker. I’m into smooth sounds😎#LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. But I can’t pretend I’m not worried, about 1) the people not taking it seriously now, and 2) what it’ll mean for at-risk people when things start back up again. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: A4 it’s helped me learn to appreciate the ones who are really there for you and to learn how to be patient with finding answers and treatment plans. It’s also helped me learn how to COMMUNICATE and that that’s very important for us to have that👍🏽 #LupusChat |
| Little Miss Rogers @BbygrlRogers @xthina_etc I’ve placed more emphasis on my needs in order to protect my immune system. More confidently declining and making healthful recommendations. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. I’ve been doing my best to stay calm and not stress too much (with shows, cooking, snacking). Everyone here is taking precaution as well. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. Thinking of the #LupusChat discussions on self-care give me more motivation to find at home activities that are relaxing and make me feel good |
| Carly by Nature @SynceNerd_Carli @BbygrlRogers @xthina_etc Thanks for joining #LupusChat Lydia 💜 |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. I’ve been doing my best to stay calm and not stress too much (with shows, cooking, snacking). Everyone here is taking precaution as well. #LupusChat |
| #LupusChat @Lupus_Chat RT @xthina_etc: A4 it’s helped me learn to appreciate the ones who are really there for you and to learn how to be patient with finding answers and treatment plans. It’s also helped me learn how to COMMUNICATE and that that’s very important for us to have that👍🏽 #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @BbygrlRogers: @xthina_etc I’ve placed more emphasis on my needs in order to protect my immune system. More confidently declining and making healthful recommendations. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: A menudo es difícil controlar los niveles de estrés en tiempos de crisis. En la pregunta 5, discutiremos las formas en que nos las arreglamos durante los momentos difíciles. #LupusChat https://t.co/gS7FN0XbeM |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: It is often difficult to manage stress levels during times of crisis. In Question 5, we will discuss the ways we cope during trying times. #LupusChat https://t.co/svjN0nlAkq |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. But I can’t pretend I’m not worried, about 1) the people not taking it seriously now, and 2) what it’ll mean for at-risk people when things start back up again. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: It’s been difficult to unplug. I find myself surfing the web for updates on the #COVID19 crisis, which has been tough on my anxiety. It’s scary because I’m immunocompromised! I’m taking all the precautions to stay safe. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A4. These conversations make me a better patient, because I make a more conscious effort to update all my specialists and what’s going on with my other specialists. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A4. It’s important to remember that your various symptoms can be related, and so make sure to mention them, even if you think it’s directly related to your HCP’s specialty. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. Thinking of the #LupusChat discussions on self-care give me more motivation to find at home activities that are relaxing and make me feel good |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: How are you coping and taking care of yourself during the #COVID19 crisis, and have our discussions on self-care and mental health helped at all? #LupusChat https://t.co/sJXlYppQsc |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: ¿Cómo se está manejando y cuidando durante la crisis #COVID19, y nuestras discusiones sobre el cuidado personal y la salud mental ayudaron en algo? #LupusChat https://t.co/ZbstuY8VRs |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat A3: @Lupus_Chat A3: I advocate for my comfort. Even before #Coronavirus, I kept away from folks that were ill, and situations that would trigger flares. One benefit of the time we are in now is the acceptance of virtual socializing! Brunches, Happy Hours, Clubbing all week long #LupusChat |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @xthina_etc I’ve placed more emphasis on my needs in order to protect my immune system. More confidently declining and making healthful recommendations. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat A3: @Lupus_Chat A3: I advocate for my comfort. Even before #Coronavirus, I kept away from folks that were ill, and situations that would trigger flares. One benefit of the time we are in now is the acceptance of virtual socializing! Brunches, Happy Hours, Clubbing all week long #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @BbygrlRogers: @xthina_etc I’ve placed more emphasis on my needs in order to protect my immune system. More confidently declining and making healthful recommendations. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A2: A2: I know it sounds silly, but sometimes I forget that asking for help is an option I have. I forget that I don’t have to struggle or suffer indefinitely. It helps that my friends and loved ones can tell when I’m in need and ask how they can assist me. #LupusChat |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A1 Besides the MANDATORY rule of staying away from the public, washing hands, & sanitizing every new item that enters your place, I’ve been practicing my violin & yoga, reading, & even writing more to mentally keep myself grounded, which is IMPORTANT during these times #LupusChat |
| #LupusChat @Lupus_Chat RT @xthina_etc: A1 Besides the MANDATORY rule of staying away from the public, washing hands, & sanitizing every new item that enters your place, I’ve been practicing my violin & yoga, reading, & even writing more to mentally keep myself grounded, which is IMPORTANT during these times #LupusChat |
| #LupusChat @Lupus_Chat Estén atentos para la última pregunta #LupusChat. https://t.co/4xKrNPwH16 |
| #LupusChat @Lupus_Chat Stay tuned, our last #LupusChat question is next! https://t.co/gOPNi1aOrV |
| itsmorenamorena @itsmorenamorena @Lupus_Chat A4: When I had to find a new Rheumy, the conversations were helpful for what I should seek out. I feel pretty good about my team now. #LupusChat |
| Dawn M Gibson @DawnMGibson A5: #LupusChat, I've found participating in the #HighRiskCovid19 campaign's leadership has been empowering. I will be taking some time off though. Need some recovery time. Time to start my veggie garden. @HighRiskCovid19 <thread> |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat A4: @Lupus_Chat A4: When I had to find a new Rheumy, the conversations were helpful for what I should seek out. I feel pretty good about my team now. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @BbygrlRogers: @Lupus_Chat A2: @Lupus_Chat A2: This has been great space to just belong. I don’t have difficulty discussing my health but have difficulty finding others that want to listen and sometimes I just need an ear. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A5. I’ve been doing my best to stay calm and not stress too much (with shows, cooking, snacking). Everyone here is taking precaution as well. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @xthina_etc: A4 it’s helped me learn to appreciate the ones who are really there for you and to learn how to be patient with finding answers and treatment plans. It’s also helped me learn how to COMMUNICATE and that that’s very important for us to have that👍🏽 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A5. But I can’t pretend I’m not worried, about 1) the people not taking it seriously now, and 2) what it’ll mean for at-risk people when things start back up again. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: It’s been difficult to unplug. I find myself surfing the web for updates on the #COVID19 crisis, which has been tough on my anxiety. It’s scary because I’m immunocompromised! I’m taking all the precautions to stay safe. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @DawnMGibson: A5: A5: #LupusChat, I've found participating in the #HighRiskCovid19 campaign's leadership has been empowering. I will be taking some time off though. Need some recovery time. Time to start my veggie garden. @HighRiskCovid19 <thread> |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat A4: @Lupus_Chat A4: When I had to find a new Rheumy, the conversations were helpful for what I should seek out. I feel pretty good about my team now. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Stay tuned, our last #LupusChat question is next! https://t.co/gOPNi1aOrV |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Stay tuned, our last #LupusChat question is next! https://t.co/gOPNi1aOrV |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: A1 Besides the MANDATORY rule of staying away from the public, washing hands, & sanitizing every new item that enters your place, I’ve been practicing my violin & yoga, reading, & even writing more to mentally keep myself grounded, which is IMPORTANT during these times #LupusChat |
| #LupusChat @Lupus_Chat Q6: Evaluating your current and anticipated needs, how can our team be of better service to you as members of the #LupusChat community? https://t.co/XC9GlmEYSv |
| #LupusChat @Lupus_Chat Q6: Evaluando sus necesidades actuales y previstas, ¿cómo puede nuestro equipo ser de mejor servicio para usted como miembros de la comunidad #LupusChat? https://t.co/rGcE5UkyeG |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A2: A2: I know it sounds silly, but sometimes I forget that asking for help is an option I have. I forget that I don’t have to struggle or suffer indefinitely. It helps that my friends and loved ones can tell when I’m in need and ask how they can assist me. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @BbygrlRogers: @xthina_etc I’ve placed more emphasis on my needs in order to protect my immune system. More confidently declining and making healthful recommendations. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @DawnMGibson: A5: A5: #LupusChat, I've found participating in the #HighRiskCovid19 campaign's leadership has been empowering. I will be taking some time off though. Need some recovery time. Time to start my veggie garden. @HighRiskCovid19 <thread> |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q6: Q6: Evaluating your current and anticipated needs, how can our team be of better service to you as members of the #LupusChat community? https://t.co/XC9GlmEYSv |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q6: Q6: Evaluating your current and anticipated needs, how can our team be of better service to you as members of the #LupusChat community? https://t.co/XC9GlmEYSv |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q6: Q6: Evaluando sus necesidades actuales y previstas, ¿cómo puede nuestro equipo ser de mejor servicio para usted como miembros de la comunidad #LupusChat? https://t.co/rGcE5UkyeG |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @itsmorenamorena @Lupus_Chat That's great to hear. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @xthina_etc: A3 I’ve learned to put more awareness with being more prepared for all social events (commute, environment of the place, how many people would be attending, and what I’d need to keep me comfortable while being there) #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q6: Q6: Evaluating your current and anticipated needs, how can our team be of better service to you as members of the #LupusChat community? https://t.co/XC9GlmEYSv |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q6: Q6: Evaluating your current and anticipated needs, how can our team be of better service to you as members of the #LupusChat community? https://t.co/XC9GlmEYSv |
| #LupusChat @Lupus_Chat RT @DawnMGibson: A5: A5: #LupusChat, I've found participating in the #HighRiskCovid19 campaign's leadership has been empowering. I will be taking some time off though. Need some recovery time. Time to start my veggie garden. @HighRiskCovid19 <thread> |
| Dawn M Gibson @DawnMGibson A5: We must try to stay physically safe, but guarding our moods and mindset is equally important. I need things to look forward to, we all do. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. I appreciate a lot the opportunity to just come together and virtually hang out with community members. More of this please. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @Xtel007: A4. These conversations make me a better patient, because I make a more conscious effort to update all my specialists and what’s going on with my other specialists. #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: I’m attempting to cope by trying to take in as much factual information as I can, processing it, and using it to help others. Other than that. I...am not. 🙃 #LupusChat |
| itsmorenamorena @itsmorenamorena RT @BbygrlRogers: @Lupus_Chat A2: @Lupus_Chat A2: This has been great space to just belong. I don’t have difficulty discussing my health but have difficulty finding others that want to listen and sometimes I just need an ear. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: I’m attempting to cope by trying to take in as much factual information as I can, processing it, and using it to help others. Other than that. I...am not. 🙃 #LupusChat |
| #LupusChat @Lupus_Chat RT @DawnMGibson: A5: A5: We must try to stay physically safe, but guarding our moods and mindset is equally important. I need things to look forward to, we all do. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. I appreciate a lot the opportunity to just come together and virtually hang out with community members. More of this please. #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: Estoy tratando de hacer frente tratando de asimilar la mayor cantidad de información factual que pueda, profesándola y usándola para ayudar a otros. Aparte de eso. Yo no soy. 🙃 #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. In the past year, at every conference/meeting we went to, we tried to meet with some members of our #LupusChat community. Also need more of that post-quarantine. |
| itsmorenamorena @itsmorenamorena RT @Xtel007: A5. But I can’t pretend I’m not worried, about 1) the people not taking it seriously now, and 2) what it’ll mean for at-risk people when things start back up again. #LupusChat |
| Dawn M Gibson @DawnMGibson A5: I'll be reading, coloring, taking pictures, and writing. It's never a waste of time to be happy or feed the soul. #LupusChat |
| itsmorenamorena @itsmorenamorena Ditto #LupusChat |
| rob @robcuzican RT @xthina_etc: A4 it’s helped me learn to appreciate the ones who are really there for you and to learn how to be patient with finding answers and treatment plans. It’s also helped me learn how to COMMUNICATE and that that’s very important for us to have that👍🏽 #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. I’d like more conversations about empowering ourselves and each other to create a more supportive and encouraging space for ourselves in our every day lives. #LupusChat |
| Dawn M Gibson @DawnMGibson A5: I hope the butterflies find my garden again this year! #LupusChat https://t.co/1LhHH706Nd |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. I’d like more conversations about empowering ourselves and each other to create a more supportive and encouraging space for ourselves in our every day lives. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @DawnMGibson: A5: A5: I hope the butterflies find my garden again this year! #LupusChat https://t.co/1LhHH706Nd |
| Tiffany ⁷ @TiffanyAndLupus RT @DawnMGibson: A5: A5: I'll be reading, coloring, taking pictures, and writing. It's never a waste of time to be happy or feed the soul. #LupusChat |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A6 if and when you can, keep us updated with news that would be very relevant to us with lupus. We always appreciate your hard work and support👏🏽 #LupusChat |
| #LupusChat @Lupus_Chat ¡Agradeciendo a cada uno de ustedes por unirse hoy a nuestro #LupusChat Check-In! Apreciamos todo lo que ha compartido y estamos orgullosos de las formas en que ha crecido. https://t.co/TCJQgMREf9 |
| #LupusChat @Lupus_Chat Thanking each of you for joining our #LupusChat Check-In today! We appreciate all you’ve shared and we’re proud of the ways you’ve grown. https://t.co/bgpP5tMMqI |
| Carly by Nature @SynceNerd_Carli Not my love DMing me, knowing I’m doing #LupusChat right now. 🙄 (I know she gon see this and talk her sh*t when I get upstairs 🤣) https://t.co/a8QHQgEizx |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A5. Thinking of the #LupusChat discussions on self-care give me more motivation to find at home activities that are relaxing and make me feel good |
| Little Miss Rogers @BbygrlRogers @DawnMGibson @HighRiskCovid19 A5: I’m coping well by utilizing self-care, which is emphasized here. I’m physically isolating but staying engaged online and by phone. It’s been a great time to revisit my diet,rest,and exercise routines. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @Lupus_Chat A3: @Lupus_Chat A3: I advocate for my comfort. Even before #Coronavirus, I kept away from folks that were ill, and situations that would trigger flares. One benefit of the time we are in now is the acceptance of virtual socializing! Brunches, Happy Hours, Clubbing all week long #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: I’m doing my best to stay informed about #COVID19. Currently there are a lot of initiatives both patient-led (@HighRiskCovid19) & physician-led (@rheum_covid) so I encourage #LupusChat community members to start there to demystify some of the confusion. |
| Carly by Nature @SynceNerd_Carli RT @BbygrlRogers: @xthina_etc I’ve placed more emphasis on my needs in order to protect my immune system. More confidently declining and making healthful recommendations. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @xthina_etc: A6 if and when you can, keep us updated with news that would be very relevant to us with lupus. We always appreciate your hard work and support👏🏽 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @Lupus_Chat A4: @Lupus_Chat A4: When I had to find a new Rheumy, the conversations were helpful for what I should seek out. I feel pretty good about my team now. #LupusChat |
| #LupusChat @Lupus_Chat RT @DawnMGibson: A5: A5: I'll be reading, coloring, taking pictures, and writing. It's never a waste of time to be happy or feed the soul. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. In the past year, at every conference/meeting we went to, we tried to meet with some members of our #LupusChat community. Also need more of that post-quarantine. |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: Estoy tratando de hacer frente tratando de asimilar la mayor cantidad de información factual que pueda, profesándola y usándola para ayudar a otros. Aparte de eso. Yo no soy. 🙃 #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. I’d like more conversations about empowering ourselves and each other to create a more supportive and encouraging space for ourselves in our every day lives. #LupusChat |
| #LupusChat @Lupus_Chat RT @DawnMGibson: A5: A5: I hope the butterflies find my garden again this year! #LupusChat https://t.co/1LhHH706Nd |
| Carly by Nature @SynceNerd_Carli @itsmorenamorena @Lupus_Chat So happy we could help💜 #LupusChat |
| #LupusChat @Lupus_Chat RT @xthina_etc: A6 if and when you can, keep us updated with news that would be very relevant to us with lupus. We always appreciate your hard work and support👏🏽 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DawnMGibson: A5: A5: #LupusChat, I've found participating in the #HighRiskCovid19 campaign's leadership has been empowering. I will be taking some time off though. Need some recovery time. Time to start my veggie garden. @HighRiskCovid19 <thread> |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: @DawnMGibson @HighRiskCovid19 A5: @DawnMGibson @HighRiskCovid19 A5: I’m coping well by utilizing self-care, which is emphasized here. I’m physically isolating but staying engaged online and by phone. It’s been a great time to revisit my diet,rest,and exercise routines. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: I’m doing my best to stay informed about #COVID19. Currently there are a lot of initiatives both patient-led (@HighRiskCovid19) & physician-led (@rheum_covid) so I encourage #LupusChat community members to start there to demystify some of the confusion. |
| Carly by Nature @SynceNerd_Carli RT @DawnMGibson: A5: A5: We must try to stay physically safe, but guarding our moods and mindset is equally important. I need things to look forward to, we all do. #LupusChat |
| Dawn M Gibson @DawnMGibson RT @TiffanyAndLupus: A5: A5: I’m doing my best to stay informed about #COVID19. Currently there are a lot of initiatives both patient-led (@HighRiskCovid19) & physician-led (@rheum_covid) so I encourage #LupusChat community members to start there to demystify some of the confusion. |
| #LupusChat @Lupus_Chat Nos tomamos un descanso para descansar y recargarnos durante este momento difícil. ¡También desarrollaremos contenido nuevo y sorprendente para #LupusAwarenessMonth! Todavía estaremos disponibles para soporte, preguntas e inquietudes a través de la etiqueta #LupusChat. https://t.co/9jWUDjekEJ |
| #LupusChat @Lupus_Chat We'll be on chat hiatus starting today. In honor of #LupusAwarenessMonth, there will be a chat every Sunday for the month of May. So please join us when we return for #LupusChat on Sunday, May 3rd at 3pm ET! https://t.co/XMBI1zFLA7 |
| Carly by Nature @SynceNerd_Carli @DawnMGibson I was going to ask about the butterflies the other day in the DBG group chat 😂 missed them. Thanks for sharing. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @DawnMGibson: A5: A5: We must try to stay physically safe, but guarding our moods and mindset is equally important. I need things to look forward to, we all do. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @BbygrlRogers: @DawnMGibson @HighRiskCovid19 A5: @DawnMGibson @HighRiskCovid19 A5: I’m coping well by utilizing self-care, which is emphasized here. I’m physically isolating but staying engaged online and by phone. It’s been a great time to revisit my diet,rest,and exercise routines. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: A6 if and when you can, keep us updated with news that would be very relevant to us with lupus. We always appreciate your hard work and support👏🏽 #LupusChat |
| #LupusChat @Lupus_Chat Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/kKY8u4jvRj |
| #LupusChat @Lupus_Chat Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/QBM5KqN0I5 |
| Dawn M Gibson @DawnMGibson RT @Lupus_Chat: Q6: Q6: Evaluating your current and anticipated needs, how can our team be of better service to you as members of the #LupusChat community? https://t.co/XC9GlmEYSv |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: We'll be on chat hiatus starting today. In honor of #LupusAwarenessMonth, there will be a chat every Sunday for the month of May. So please join us when we return for #LupusChat on Sunday, May 3rd at 3pm ET! https://t.co/XMBI1zFLA7 |
| itsmorenamorena @itsmorenamorena @Lupus_Chat A5: Eating and napping, two of my favorite things🤷🏾♀️🤣#Selfcare is my ministry, but I need to get a better handle on boundaries. I'm at my desk all the time now with remote work and grad school. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @BbygrlRogers: @DawnMGibson @HighRiskCovid19 A5: @DawnMGibson @HighRiskCovid19 A5: I’m coping well by utilizing self-care, which is emphasized here. I’m physically isolating but staying engaged online and by phone. It’s been a great time to revisit my diet,rest,and exercise routines. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @DawnMGibson: A5: A5: I'll be reading, coloring, taking pictures, and writing. It's never a waste of time to be happy or feed the soul. #LupusChat |
| #LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat A5: @Lupus_Chat A5: Eating and napping, two of my favorite things🤷🏾♀️🤣#Selfcare is my ministry, but I need to get a better handle on boundaries. I'm at my desk all the time now with remote work and grad school. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q6: Q6: Evaluando sus necesidades actuales y previstas, ¿cómo puede nuestro equipo ser de mejor servicio para usted como miembros de la comunidad #LupusChat? https://t.co/rGcE5UkyeG |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A5 : Been sheltering in place since Monday. Staying in. Only going out for a fww minutes at a time. The discussions have helped me be more proactive in taking care of myself. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q6: Q6: Evaluating your current and anticipated needs, how can our team be of better service to you as members of the #LupusChat community? https://t.co/XC9GlmEYSv |
 | Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Barely made it to #LupusChat today,doing laundry. Ivey Janette,Albuquerque. Living with lupus and lupus nephritis since 1995. First record I ever bought was Snoopy vs the Red Baron. I was 6. |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: We'll be on chat hiatus starting today. In honor of #LupusAwarenessMonth, there will be a chat every Sunday for the month of May. So please join us when we return for #LupusChat on Sunday, May 3rd at 3pm ET! https://t.co/XMBI1zFLA7 |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: We'll be on chat hiatus starting today. In honor of #LupusAwarenessMonth, there will be a chat every Sunday for the month of May. So please join us when we return for #LupusChat on Sunday, May 3rd at 3pm ET! https://t.co/XMBI1zFLA7 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what was the first record, cassette tape, or CD that you ever owned? https://t.co/4T3kEfF2Xh |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Nos tomamos un descanso para descansar y recargarnos durante este momento difícil. ¡También desarrollaremos contenido nuevo y sorprendente para #LupusAwarenessMonth! Todavía estaremos disponibles para soporte, preguntas e inquietudes a través de la etiqueta #LupusChat. https://t.co/9jWUDjekEJ |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A5: A5: I’m doing my best to stay informed about #COVID19. Currently there are a lot of initiatives both patient-led (@HighRiskCovid19) & physician-led (@rheum_covid) so I encourage #LupusChat community members to start there to demystify some of the confusion. |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1: Q1: Can you share ways that our chats have addressed topics relevant to your everyday life? #LupusChat https://t.co/npmh8gCHNs |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Yay this was a great #LupusChat. Time to go make some diri kole! |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat Barely made it to #LupusChat today,doing laundry. Ivey Janette,Albuquerque. Living with lupus and lupus nephritis since 1995. First record I ever bought was Snoopy vs the Red Baron. I was 6. |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Been sheltering in place since Monday. Staying in. Only going out for a fww minutes at a time. The discussions have helped me be more proactive in taking care of myself. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Barely made it to #LupusChat today,doing laundry. Ivey Janette,Albuquerque. Living with lupus and lupus nephritis since 1995. First record I ever bought was Snoopy vs the Red Baron. I was 6. |
| itsmorenamorena @itsmorenamorena RT @Xtel007: A6. I appreciate a lot the opportunity to just come together and virtually hang out with community members. More of this please. #LupusChat |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/QBM5KqN0I5 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A1. It has made it easier to live with lupus. And that I'm clearly not alone in this ongoing fight. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: We'll be on chat hiatus starting today. In honor of #LupusAwarenessMonth, there will be a chat every Sunday for the month of May. So please join us when we return for #LupusChat on Sunday, May 3rd at 3pm ET! https://t.co/XMBI1zFLA7 |
| Carly by Nature @SynceNerd_Carli #LupusChat fam, please let us know how we can serve you better👇🏾 |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/QBM5KqN0I5 |
| itsmorenamorena @itsmorenamorena Agreed! It was a joy to meet y'all #LupusChat 💜❤️💜 |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. I appreciate a lot the opportunity to just come together and virtually hang out with community members. More of this please. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Thanking each of you for joining our #LupusChat Check-In today! We appreciate all you’ve shared and we’re proud of the ways you’ve grown. https://t.co/bgpP5tMMqI |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. In the past year, at every conference/meeting we went to, we tried to meet with some members of our #LupusChat community. Also need more of that post-quarantine. |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. I’d like more conversations about empowering ourselves and each other to create a more supportive and encouraging space for ourselves in our every day lives. #LupusChat |
| itsmorenamorena @itsmorenamorena RT @TiffanyAndLupus: A5: A5: I’m doing my best to stay informed about #COVID19. Currently there are a lot of initiatives both patient-led (@HighRiskCovid19) & physician-led (@rheum_covid) so I encourage #LupusChat community members to start there to demystify some of the confusion. |
| Carly by Nature @SynceNerd_Carli RT @xthina_etc: A6 if and when you can, keep us updated with news that would be very relevant to us with lupus. We always appreciate your hard work and support👏🏽 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: ¡Agradeciendo a cada uno de ustedes por unirse hoy a nuestro #LupusChat Check-In! Apreciamos todo lo que ha compartido y estamos orgullosos de las formas en que ha crecido. https://t.co/TCJQgMREf9 |
| itsmorenamorena @itsmorenamorena RT @BbygrlRogers: @DawnMGibson @HighRiskCovid19 A5: @DawnMGibson @HighRiskCovid19 A5: I’m coping well by utilizing self-care, which is emphasized here. I’m physically isolating but staying engaged online and by phone. It’s been a great time to revisit my diet,rest,and exercise routines. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Thanking each of you for joining our #LupusChat Check-In today! We appreciate all you’ve shared and we’re proud of the ways you’ve grown. https://t.co/bgpP5tMMqI |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: I’m doing my best to stay informed about #COVID19. Currently there are a lot of initiatives both patient-led (@HighRiskCovid19) & physician-led (@rheum_covid) so I encourage #LupusChat community members to start there to demystify some of the confusion. |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A4 : I have gotten tips on how to be prepared for doctor visits, what to bring and recording symptoms and questions. #LupusChat |
| Michelle @wordsbymj Thank you to the #LupusChat hosts for creating this space and filling it with great prompts, info, humor, and care! |
| Dawn M Gibson @DawnMGibson 🦋🦋🦋 If the muse brings them to my garden you'll see them. We have about 4-7 weeks until Black Swallowtails are out. And, on the DL, I kept 4 chrysalis overwintering in my house. Hopefully we'll get at least 1 butterfly. #LupusChat 🦋🦋🦋 |
 | David Lazar, MD MPH @DrDavidLazar @Xtel007 @SLeonMD Thank you! I enjoyed that #Lupuschat and I will continue to participate. |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I have gotten tips on how to be prepared for doctor visits, what to bring and recording symptoms and questions. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A2. Yes and no. I've only become comfortable about discussing lupus in the last 10 years. Still feel skittish about talking about what I need from people. Especially after family members passed on. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A1. It has made it easier to live with lupus. And that I'm clearly not alone in this ongoing fight. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Been sheltering in place since Monday. Staying in. Only going out for a fww minutes at a time. The discussions have helped me be more proactive in taking care of myself. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat A5: @Lupus_Chat A5: Eating and napping, two of my favorite things🤷🏾♀️🤣#Selfcare is my ministry, but I need to get a better handle on boundaries. I'm at my desk all the time now with remote work and grad school. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2: Q2: After several #LupusChat discussions on opening up, do you feel more comfortable letting others around you know what your needs are? What would make you more comfortable? https://t.co/vyIMUgwBUQ |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. In the past year, at every conference/meeting we went to, we tried to meet with some members of our #LupusChat community. Also need more of that post-quarantine. |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A5: A5: I’m attempting to cope by trying to take in as much factual information as I can, processing it, and using it to help others. Other than that. I...am not. 🙃 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. I appreciate a lot the opportunity to just come together and virtually hang out with community members. More of this please. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q3: Q3: Reflecting on our #LupusChat discussions about socializing and isolation, in what ways have you changed with regards to navigating social situations? https://t.co/VJ2UrQGGGb |
| Tiffany ⁷ @TiffanyAndLupus RT @wordsbymj: Thank you to the #LupusChat hosts for creating this space and filling it with great prompts, info, humor, and care! |
| Carly by Nature @SynceNerd_Carli Thank you to everyone who joined today’s #LupusChat. We appreciate your honesty and feedback. Thank you for letting us continue to serve you. We’ll see you in May! 💜💜 https://t.co/sIDSFYAmxG |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A3. Other than work and gigs,I don't go out much. Too tired to do much. Even now after surgery and 3 flares last year,I still stay home. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4: Q4: How did #LupusChat conversations on collaborative partnerships change your approach with your healthcare providers? https://t.co/bPOCTRGCSW |
| Carly by Nature @SynceNerd_Carli Gracias a todos los que se unieron al #LupusChat de hoy. Agradecemos su honestidad y comentarios. Gracias por permitirnos continuar sirviéndole. ¡Nos vemos en mayo! 💜💜 https://t.co/RVfBFLRxyn |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: #LupusChat is proud to support the COVID-19 Global Rheumatology Alliance. @rheum_covid is an international effort consisting of rheumatologists, advocacy groups, patients, and other healthcare professionals in response to the worldwide #COVID19 pandemic: https://t.co/DuRVhB538c https://t.co/53oMfyRvfu |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: We'll be on chat hiatus starting today. In honor of #LupusAwarenessMonth, there will be a chat every Sunday for the month of May. So please join us when we return for #LupusChat on Sunday, May 3rd at 3pm ET! https://t.co/XMBI1zFLA7 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A4. It helped a lot when I had to switch my PCP and rheumatologist in 2018. They listened to my questions and concerns. Old ones didn't. I've had the same kidney doctor since 2009. He's always made time for questions and suggestions. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Nos tomamos un descanso para descansar y recargarnos durante este momento difícil. ¡También desarrollaremos contenido nuevo y sorprendente para #LupusAwarenessMonth! Todavía estaremos disponibles para soporte, preguntas e inquietudes a través de la etiqueta #LupusChat. https://t.co/9jWUDjekEJ |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q5: Q5: How are you coping and taking care of yourself during the #COVID19 crisis, and have our discussions on self-care and mental health helped at all? #LupusChat https://t.co/sJXlYppQsc |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A5. In bed. Still on medical leave from work. I'm in pulmonary rehab 3 days a week. Other than that and doctors' appointments,I'm at home. Doing lots of reading and cooking. Faith pulling me through. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q6: Q6: Evaluating your current and anticipated needs, how can our team be of better service to you as members of the #LupusChat community? https://t.co/XC9GlmEYSv |
#LupusChat content from Twitter.