#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
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See #LupusChat Influencers/Analytics.
Profile | Tweet |
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Carly by Nature @SynceNerd_Carli Aye!! It's #LupusChat Tiiiiiiime!!! Let's Goooooo!!! https://t.co/Ntj8iSjO2a | |
#LupusChat @Lupus_Chat Bienvenido a #LupusChat! Hoy discutiremos los variados roles que podemos desempeñar al considerar el empoderamiento, la importancia del trabajo que hacemos y cómo magnificar los esfuerzos de nuestro impacto. https://t.co/xPzdklChYb | |
#LupusChat @Lupus_Chat Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1 | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Aye!! It's #LupusChat Tiiiiiiime!!! Let's Goooooo!!! https://t.co/Ntj8iSjO2a | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1 | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1 | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy discutiremos los variados roles que podemos desempeñar al considerar el empoderamiento, la importancia del trabajo que hacemos y cómo magnificar los esfuerzos de nuestro impacto. https://t.co/xPzdklChYb | |
Jillian G @Jillian_Gomes RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy discutiremos los variados roles que podemos desempeñar al considerar el empoderamiento, la importancia del trabajo que hacemos y cómo magnificar los esfuerzos de nuestro impacto. https://t.co/xPzdklChYb | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1 | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy discutiremos los variados roles que podemos desempeñar al considerar el empoderamiento, la importancia del trabajo que hacemos y cómo magnificar los esfuerzos de nuestro impacto. https://t.co/xPzdklChYb | |
UMass Lupus @UMassLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1 | |
UMass Lupus @UMassLupus RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy discutiremos los variados roles que podemos desempeñar al considerar el empoderamiento, la importancia del trabajo que hacemos y cómo magnificar los esfuerzos de nuestro impacto. https://t.co/xPzdklChYb | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: Aye!! It's #LupusChat Tiiiiiiime!!! Let's Goooooo!!! https://t.co/Ntj8iSjO2a | |
#LupusChat @Lupus_Chat Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. | |
#LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. | |
RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1 | |
Carly by Nature @SynceNerd_Carli Aye! It's #LupusChat Sunday. Sooooo y'all already know, for the next hour and change that's all the content coming from over here. Please, mute as needed or stick around and learn something. It's up to you. https://t.co/GPsGpJz69b | |
#LupusChat @Lupus_Chat Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/Oi3vH7PUQM | |
#LupusChat @Lupus_Chat Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/cFSUrQHuLp | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/cFSUrQHuLp | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/Oi3vH7PUQM | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Aye! It's #LupusChat Sunday. Sooooo y'all already know, for the next hour and change that's all the content coming from over here. Please, mute as needed or stick around and learn something. It's up to you. https://t.co/GPsGpJz69b | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/cFSUrQHuLp | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/Oi3vH7PUQM | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/cFSUrQHuLp | |
#LupusChat @Lupus_Chat Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G | |
#LupusChat @Lupus_Chat Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vKrZFeKfDn | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Aye! It's #LupusChat Sunday. Sooooo y'all already know, for the next hour and change that's all the content coming from over here. Please, mute as needed or stick around and learn something. It's up to you. https://t.co/GPsGpJz69b | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vKrZFeKfDn | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/cFSUrQHuLp | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vKrZFeKfDn | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vKrZFeKfDn | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G | |
RaquelRoschell @raquelonpurpose @Lupus_Chat Let's go! It's #LupusChat time! | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G | |
#LupusChat @Lupus_Chat As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/b3hIRedHz9 | |
#LupusChat @Lupus_Chat Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/YZceeKPtZL | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/b3hIRedHz9 | |
Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat Let's go! It's #LupusChat time! | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1 | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat Let's go! It's #LupusChat time! | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/b3hIRedHz9 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/YZceeKPtZL | |
#LupusChat @Lupus_Chat Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, cual es su tradición favorita? https://t.co/1h3Fofyd6A | |
#LupusChat @Lupus_Chat Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat Let's go! It's #LupusChat time! | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/b3hIRedHz9 | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/YZceeKPtZL | |
Caring For Lupus @CaringForLupus Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, cual es su tradición favorita? https://t.co/1h3Fofyd6A | |
Caring For Lupus @CaringForLupus Hola ... Soy Elizabeth de NJ y co-anfitriona de #LupusChat. Mi hija de doce años es Lupus Warrior 💜💪. Una de nuestras tradiciones favoritas es reunirnos cada dos semanas. Somos aproximadamente 25 de nosotros ... entre los pequeños y los adultos. https://t.co/hgoQ5y5Hmh | |
#LupusChat @Lupus_Chat RT @CaringForLupus: Hola ... Soy Elizabeth de NJ y co-anfitriona de #LupusChat. Mi hija de doce años es Lupus Warrior 💜💪. Una de nuestras tradiciones favoritas es reunirnos cada dos semanas. Somos aproximadamente 25 de nosotros ... entre los pequeños y los adultos. https://t.co/hgoQ5y5Hmh | |
#LupusChat @Lupus_Chat RT @CaringForLupus: Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5 | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat Let's go! It's #LupusChat time! | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, cual es su tradición favorita? https://t.co/1h3Fofyd6A | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5 | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Hola ... Soy Elizabeth de NJ y co-anfitriona de #LupusChat. Mi hija de doce años es Lupus Warrior 💜💪. Una de nuestras tradiciones favoritas es reunirnos cada dos semanas. Somos aproximadamente 25 de nosotros ... entre los pequeños y los adultos. https://t.co/hgoQ5y5Hmh | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st. | |
Tiffany ⁷ @TiffanyAndLupus Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5 | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st. | |
#LupusChat @Lupus_Chat RT @Xtel007: Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st. | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Joumou, not jew-mew. | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5 | |
Friends AgainstLupus @AgainstLupus RT @Xtel007: Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st. | |
Friends AgainstLupus @AgainstLupus RT @CaringForLupus: Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5 | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI | |
Caring For Lupus @CaringForLupus RT @Xtel007: Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st. | |
Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st. | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, cual es su tradición favorita? https://t.co/1h3Fofyd6A | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq | |
Carly by Nature @SynceNerd_Carli Welcome everyone! I’m Carly, Patient Advocate and a Co-host of #LupusChat. My favorite traditions are tied. Christmas time on my mom’s side and the annual family vacation on my Dad’s side. https://t.co/zMO0tZWClG | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: Welcome everyone! I’m Carly, Patient Advocate and a Co-host of #LupusChat. My favorite traditions are tied. Christmas time on my mom’s side and the annual family vacation on my Dad’s side. https://t.co/zMO0tZWClG | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Welcome everyone! I’m Carly, Patient Advocate and a Co-host of #LupusChat. My favorite traditions are tied. Christmas time on my mom’s side and the annual family vacation on my Dad’s side. https://t.co/zMO0tZWClG | |
Friends AgainstLupus @AgainstLupus RT @SynceNerd_Carli: Welcome everyone! I’m Carly, Patient Advocate and a Co-host of #LupusChat. My favorite traditions are tied. Christmas time on my mom’s side and the annual family vacation on my Dad’s side. https://t.co/zMO0tZWClG | |
Carly by Nature @SynceNerd_Carli Both give me an opportunity to spend time with family that I don’t get to see during other parts of the year. Plus my siblings and cousins are all clowns so its non-stop laughter. #LupusChat https://t.co/BVqDOaBzID | |
#LupusChat @Lupus_Chat #LupusChat | |
Carly by Nature @SynceNerd_Carli ¡Bienvenidos todos! Soy Carly, defensora de pacientes y copresentadora de #LupusChat. Mis tradiciones favoritas están ligadas. Navidad por parte de mi madre y las vacaciones familiares anuales por parte de mi padre. https://t.co/iqwwruzUPW | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1 | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: ¡Bienvenidos todos! Soy Carly, defensora de pacientes y copresentadora de #LupusChat. Mis tradiciones favoritas están ligadas. Navidad por parte de mi madre y las vacaciones familiares anuales por parte de mi padre. https://t.co/iqwwruzUPW | |
UMass Lupus @UMassLupus Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat ! | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: Both give me an opportunity to spend time with family that I don’t get to see during other parts of the year. Plus my siblings and cousins are all clowns so its non-stop laughter. #LupusChat https://t.co/BVqDOaBzID | |
#LupusChat @Lupus_Chat @SheWhoRises gentle reminder to use the #LupusChat hashtag so we can see your responses! | |
Rev. Dr. 4WheelWorkout @4WheelWorkOut I'm Tiara. As usual I'm here to learn (I don't have Lupus but many of the symptoms mirror my invisibles). I'm from CA. My fave tradition was roadtripping to NC, stopping at Parkers before getting my granny's home, & the post office for a cherry pepsi (old school style) #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G | |
Tiffany ⁷ @TiffanyAndLupus RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat ! | |
Friends AgainstLupus @AgainstLupus RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat ! | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq | |
#LupusChat @Lupus_Chat RT @4WheelWorkOut: I'm Tiara. As usual I'm here to learn (I don't have Lupus but many of the symptoms mirror my invisibles). I'm from CA. My fave tradition was roadtripping to NC, stopping at Parkers before getting my granny's home, & the post office for a cherry pepsi (old school style) #LupusChat | |
Carly by Nature @SynceNerd_Carli Ambos me dan la oportunidad de pasar tiempo con la familia que no puedo ver durante otras partes del año. Además, mis hermanos y primos son todos payasos, así que es una risa sin parar. #LupusChat https://t.co/bstRBooRzn | |
#LupusChat @Lupus_Chat RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat ! | |
Tiffany ⁷ @TiffanyAndLupus RT @4WheelWorkOut: I'm Tiara. As usual I'm here to learn (I don't have Lupus but many of the symptoms mirror my invisibles). I'm from CA. My fave tradition was roadtripping to NC, stopping at Parkers before getting my granny's home, & the post office for a cherry pepsi (old school style) #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @4WheelWorkOut: I'm Tiara. As usual I'm here to learn (I don't have Lupus but many of the symptoms mirror my invisibles). I'm from CA. My fave tradition was roadtripping to NC, stopping at Parkers before getting my granny's home, & the post office for a cherry pepsi (old school style) #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat ! | |
RaquelRoschell @raquelonpurpose Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 @UMassLupus @Lupus_Chat Hi Jillian. Welcome! #LupusChat | |
Carly by Nature @SynceNerd_Carli @4WheelWorkOut Thanks for joining us, T! Always a pleasure. #LupusChat 💜 | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat ! | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat | |
Caring For Lupus @CaringForLupus RT @4WheelWorkOut: I'm Tiara. As usual I'm here to learn (I don't have Lupus but many of the symptoms mirror my invisibles). I'm from CA. My fave tradition was roadtripping to NC, stopping at Parkers before getting my granny's home, & the post office for a cherry pepsi (old school style) #LupusChat | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat | |
Caring For Lupus @CaringForLupus RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat ! | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Welcome everyone! I’m Carly, Patient Advocate and a Co-host of #LupusChat. My favorite traditions are tied. Christmas time on my mom’s side and the annual family vacation on my Dad’s side. https://t.co/zMO0tZWClG | |
#LupusChat @Lupus_Chat Is everyone ready? Here comes Question 1! #LupusChat https://t.co/n7Q3zOHVdn | |
#LupusChat @Lupus_Chat Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/jbMiQA8Uxo | |
Tiffany ⁷ @TiffanyAndLupus @UMassLupus Hi Jillian! So happy to have you join us at #LupusChat today! | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat | |
Carly by Nature @SynceNerd_Carli @UMassLupus Hi Jillian! Thanks for joining us for #LupusChat today. And thank you for all you do! 💜 | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat | |
#LupusChat @Lupus_Chat Q1: Con qué tipos de campañas de promoción de empoderamiento y abogacía está familiarizado? #LupusChat https://t.co/ceckWpsdO0 | |
#LupusChat @Lupus_Chat Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7 | |
Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: @SheWhoRises gentle reminder to use the #LupusChat hashtag so we can see your responses! | |
Friends AgainstLupus @AgainstLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat | |
Jillian G @Jillian_Gomes @Lupus_Chat Jillian here originally from Hawaii/Guam..currently in Jersey City..diagnosed in 2017..I am a SoulCycle addict, love movies...one of my favorite traditions is Thanksgiving with the family. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat | |
Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Jillian_Gomes: @Lupus_Chat Jillian here originally from Hawaii/Guam..currently in Jersey City..diagnosed in 2017..I am a SoulCycle addict, love movies...one of my favorite traditions is Thanksgiving with the family. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Jillian_Gomes: @Lupus_Chat Jillian here originally from Hawaii/Guam..currently in Jersey City..diagnosed in 2017..I am a SoulCycle addict, love movies...one of my favorite traditions is Thanksgiving with the family. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Jillian_Gomes: @Lupus_Chat Jillian here originally from Hawaii/Guam..currently in Jersey City..diagnosed in 2017..I am a SoulCycle addict, love movies...one of my favorite traditions is Thanksgiving with the family. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7 | |
#LupusChat @Lupus_Chat RT @Jillian_Gomes: @Lupus_Chat Jillian here originally from Hawaii/Guam..currently in Jersey City..diagnosed in 2017..I am a SoulCycle addict, love movies...one of my favorite traditions is Thanksgiving with the family. #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7 | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7 | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7 | |
Adri @supacooladri Hi everyone happy Sunday! I'm Adriana from San Diego....don't really many traditions but I do love to bake! #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. There are yearly advocacy campaigns in DC (and virtually) to reach out to elected officials, as well as state-based efforts. #LupusChat | |
RaquelRoschell @raquelonpurpose @Lupus_Chat A1 : Meaning Lupus advocacy campaigns or any kind? #LupusChat | |
Caring For Lupus @CaringForLupus A1 A campaign I'm familiar with...is the #Lupuschat May Awareness month!!!! Every Sunday during May we host a Twitter chat at 3pm Eastern Time . https://t.co/DGbWJ3TDkr | |
Carly by Nature @SynceNerd_Carli @raquelonpurpose Thanks for joining us for #LupusChat, Raquel. Always great to have you with us. Also, coffee is a MUST! | |
Tiffany ⁷ @TiffanyAndLupus A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Is everyone ready? Here comes Question 1! #LupusChat https://t.co/n7Q3zOHVdn | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/jbMiQA8Uxo | |
Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May. | |
Caring For Lupus @CaringForLupus A1 Annually around March different Lupus organizations host a in-person and online campaign in DC to advocate to increase funds for Lupus Research 🔬. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. I know of other advocates who do the same in their respective cities. It’s very inspiring. #LupusChat | |
Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Welcome back to #LupusChat, Ivey! 💜 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1: Q1: Con qué tipos de campañas de promoción de empoderamiento y abogacía está familiarizado? #LupusChat https://t.co/ceckWpsdO0 | |
Caring For Lupus @CaringForLupus A1 Anualmente, alrededor de Marzo, diferentes organizaciones de Lupus organizan una campaña en persona y en línea en DC para abogar para aumentar fondos para Lupus Research 🔬. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 Annually around March different Lupus organizations host a in-person and online campaign in DC to advocate to increase funds for Lupus Research 🔬. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7 | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May. | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. I know of other advocates who do the same in their respective cities. It’s very inspiring. #LupusChat | |
Kate Sattler | Sweet Freeze @katesattler @Lupus_Chat I’m Kate in Portland. Diagnosed w lupus in 2018. Hmm...need to think a bit on the favorite tradition. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: When it comes to Lupus advocacy, there are the Advocacy Summit and Hill Day events led by @LupusOrg & @LupusResearch. There’s also a NY state advocacy event held by @LADAOrg each year. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A1: I’m familiar with the large scale advocacy days that both @lupusorg & @lupusresearch host annually where they gather lupus patients all across the country to lobby in DC to secure finances to fund lupus research. #LupusChat | |
#LupusChat @Lupus_Chat RT @supacooladri: Hi everyone happy Sunday! I'm Adriana from San Diego....don't really many traditions but I do love to bake! #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A1. There are yearly advocacy campaigns in DC (and virtually) to reach out to elected officials, as well as state-based efforts. #LupusChat | |
Rev. Dr. 4WheelWorkout @4WheelWorkOut RT @Xtel007: A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May. | |
Caring For Lupus @CaringForLupus A1 Every year @KathleenArntsen with the @LADAOrg host a advocacy event in Albany 🦋💪. Patients are invited and all travel expenses are covered by the organization 💜💜. | |
Carly by Nature @SynceNerd_Carli @Jillian_Gomes @Lupus_Chat Thanks for joining us for #LupusChat Jillian! 💜 | |
#LupusChat @Lupus_Chat @raquelonpurpose It can be any kind of lupus advocacy. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 A campaign I'm familiar with...is the #Lupuschat May Awareness month!!!! Every Sunday during May we host a Twitter chat at 3pm Eastern Time . https://t.co/DGbWJ3TDkr | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May. | |
Jillian G @Jillian_Gomes @Lupus_Chat A1. I am familiar with things like the Lupus Walk..and only recently started to try and find peer groups. #LupusChat | |
Caring For Lupus @CaringForLupus A1 Todos los años @KathleenArntsen con @LADAOrg organiza un evento de promoción en Albany 🦋💪. Los pacientes están invitados y todos los gastos de viaje están cubiertos por la organización 💜💜. | |
Carly by Nature @SynceNerd_Carli RT @supacooladri: Hi everyone happy Sunday! I'm Adriana from San Diego....don't really many traditions but I do love to bake! #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 Annually around March different Lupus organizations host a in-person and online campaign in DC to advocate to increase funds for Lupus Research 🔬. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A1. I know of other advocates who do the same in their respective cities. It’s very inspiring. #LupusChat | |
itsmorenamorena @itsmorenamorena @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 Anualmente, alrededor de Marzo, diferentes organizaciones de Lupus organizan una campaña en persona y en línea en DC para abogar para aumentar fondos para Lupus Research 🔬. #LupusChat | |
Caring For Lupus @CaringForLupus A1 During the annual DC Hill event, patients and caregivers share their experiences with elected representatives and advocate for the necessity of better and new treatments for Lupus 🔬. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: En lo que respecta a la defensa del lupus, están los eventos Cumbre de defensa y Hill Day dirigidos por @LupusOrg y @LupusResearch. También hay un evento de promoción del estado de Nueva York organizado por @LADAOrg cada año. #LupusChat | |
Caring For Lupus @CaringForLupus RT @supacooladri: Hi everyone happy Sunday! I'm Adriana from San Diego....don't really many traditions but I do love to bake! #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A1. There are yearly advocacy campaigns in DC (and virtually) to reach out to elected officials, as well as state-based efforts. #LupusChat | |
RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A1: A1: When it comes to Lupus advocacy, there are the Advocacy Summit and Hill Day events led by @LupusOrg & @LupusResearch. There’s also a NY state advocacy event held by @LADAOrg each year. #LupusChat | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : Meaning Lupus advocacy campaigns or any kind? #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 During the annual DC Hill event, patients and caregivers share their experiences with elected representatives and advocate for the necessity of better and new treatments for Lupus 🔬. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 Anualmente, alrededor de Marzo, diferentes organizaciones de Lupus organizan una campaña en persona y en línea en DC para abogar para aumentar fondos para Lupus Research 🔬. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May. | |
Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A1. I know of other advocates who do the same in their respective cities. It’s very inspiring. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @supacooladri: Hi everyone happy Sunday! I'm Adriana from San Diego....don't really many traditions but I do love to bake! #LupusChat | |
Caring For Lupus @CaringForLupus RT @katesattler: @Lupus_Chat I’m Kate in Portland. Diagnosed w lupus in 2018. Hmm...need to think a bit on the favorite tradition. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Jillian_Gomes: @Lupus_Chat A1. I am familiar with things like the Lupus Walk..and only recently started to try and find peer groups. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: When it comes to Lupus advocacy, there are the Advocacy Summit and Hill Day events led by @LupusOrg & @LupusResearch. There’s also a NY state advocacy event held by @LADAOrg each year. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: I’m familiar with the large scale advocacy days that both @lupusorg & @lupusresearch host annually where they gather lupus patients all across the country to lobby in DC to secure finances to fund lupus research. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Jillian_Gomes: @Lupus_Chat A1. I am familiar with things like the Lupus Walk..and only recently started to try and find peer groups. #LupusChat | |
Caring For Lupus @CaringForLupus RT @itsmorenamorena: @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat | |
Adri @supacooladri A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat | |
#LupusChat @Lupus_Chat RT @katesattler: @Lupus_Chat I’m Kate in Portland. Diagnosed w lupus in 2018. Hmm...need to think a bit on the favorite tradition. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: When it comes to Lupus advocacy, there are the Advocacy Summit and Hill Day events led by @LupusOrg & @LupusResearch. There’s also a NY state advocacy event held by @LADAOrg each year. #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: I’m familiar with the large scale advocacy days that both @lupusorg & @lupusresearch host annually where they gather lupus patients all across the country to lobby in DC to secure finances to fund lupus research. #LupusChat | |
#LupusChat @Lupus_Chat RT @Jillian_Gomes: @Lupus_Chat A1. I am familiar with things like the Lupus Walk..and only recently started to try and find peer groups. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: #LupusChat Co-host, @CaringForLupus, also hosts a ribbon cutting ceremony to kick off #LupusAwarenessMonth. | |
#LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat | |
Caring For Lupus @CaringForLupus A1 Durante el evento anual de DC Hill, los pacientes y cuidadores comparten sus experiencias con representantes electos y abogan por la necesidad de mejores y nuevos tratamientos para Lupus 🔬. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 During the annual DC Hill event, patients and caregivers share their experiences with elected representatives and advocate for the necessity of better and new treatments for Lupus 🔬. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7 | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Con qué tipos de campañas de promoción de empoderamiento y abogacía está familiarizado? #LupusChat https://t.co/ceckWpsdO0 | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: En lo que respecta a la defensa del lupus, están los eventos Cumbre de defensa y Hill Day dirigidos por @LupusOrg y @LupusResearch. También hay un evento de promoción del estado de Nueva York organizado por @LADAOrg cada año. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: #LupusChat Co-host, @CaringForLupus, also hosts a ribbon cutting ceremony to kick off #LupusAwarenessMonth. | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 Durante el evento anual de DC Hill, los pacientes y cuidadores comparten sus experiencias con representantes electos y abogan por la necesidad de mejores y nuevos tratamientos para Lupus 🔬. #LupusChat | |
itsmorenamorena @itsmorenamorena RT @CaringForLupus: A1 A campaign I'm familiar with...is the #Lupuschat May Awareness month!!!! Every Sunday during May we host a Twitter chat at 3pm Eastern Time . https://t.co/DGbWJ3TDkr | |
Caring For Lupus @CaringForLupus A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn | |
Caring For Lupus @CaringForLupus A1 Todos los años desde el diagnóstico de Miah, organizo un evento de Ceremonia 🎀 en Kearny NJ para celebrar el comienzo del Mes de Conciencia del Lupus en los Estados Unidos. #LupusChat https://t.co/Yspmz333j1 | |
Caring For Lupus @CaringForLupus A1 . Many Lupus advocates work closely with their corresponding town representatives to request a Proclamation 📜 designating May as Lupus Awareness Month in their town. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn | |
Caring For Lupus @CaringForLupus 1. Muchos defensores de Lupus trabajan con sus representantes de la ciudad correspondientes para solicitar una Proclamación 📜 designando Mayo como el Mes de la Conciencia del Lupus en su ciudad. #LupusChat | |
Carly by Nature @SynceNerd_Carli @supacooladri Welcome to #LupusChat, Adriana! Thanks for joining us. | |
Carly by Nature @SynceNerd_Carli A1: El coanfitrión de #LupusChat, @CaringForLupus, también organiza una ceremonia de corte de cinta para comenzar #LupusAwarenessMonth. | |
itsmorenamorena @itsmorenamorena A1: Well...to begin...#LupusChat! 💜❤️ | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. There are yearly advocacy campaigns in DC (and virtually) to reach out to elected officials, as well as state-based efforts. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: En lo que respecta a la defensa del lupus, están los eventos Cumbre de defensa y Hill Day dirigidos por @LupusOrg y @LupusResearch. También hay un evento de promoción del estado de Nueva York organizado por @LADAOrg cada año. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: El coanfitrión de #LupusChat, @CaringForLupus, también organiza una ceremonia de corte de cinta para comenzar #LupusAwarenessMonth. | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: El coanfitrión de #LupusChat, @CaringForLupus, también organiza una ceremonia de corte de cinta para comenzar #LupusAwarenessMonth. | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn | |
Friends AgainstLupus @AgainstLupus RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn | |
Caring For Lupus @CaringForLupus RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️ | |
Caring For Lupus @CaringForLupus A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 . Many Lupus advocates work closely with their corresponding town representatives to request a Proclamation 📜 designating May as Lupus Awareness Month in their town. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @CaringForLupus: A1 . Many Lupus advocates work closely with their corresponding town representatives to request a Proclamation 📜 designating May as Lupus Awareness Month in their town. #LupusChat | |
⚜️Rev johnboy freeman⚜️dna provenrelated2 st luke @RevJohnboy RT @katesattler: @Lupus_Chat I’m Kate in Portland. Diagnosed w lupus in 2018. Hmm...need to think a bit on the favorite tradition. #LupusChat | |
#LupusChat @Lupus_Chat RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️ | |
Friends AgainstLupus @AgainstLupus RT @supacooladri: A1: A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: El coanfitrión de #LupusChat, @CaringForLupus, también organiza una ceremonia de corte de cinta para comenzar #LupusAwarenessMonth. | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 . Many Lupus advocates work closely with their corresponding town representatives to request a Proclamation 📜 designating May as Lupus Awareness Month in their town. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @SynceNerd_Carli: A1: A1: #LupusChat Co-host, @CaringForLupus, also hosts a ribbon cutting ceremony to kick off #LupusAwarenessMonth. | |
#LupusChat @Lupus_Chat RT @supacooladri: A1: A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn | |
Carly by Nature @SynceNerd_Carli A1: Throughout the year both local and national organizations host trainings, awareness events, educational meetings, and community outreach events. #LupusChat | |
#LupusChat @Lupus_Chat People often have their own ideas about what advocacy is and consists of. For Question 2, let’s explore the realities of the advocacy space. #LupusChat https://t.co/DaaGSVcOFJ | |
#LupusChat @Lupus_Chat Las personas a menudo tienen sus propias ideas sobre lo que significa ser un defensor y lo que es. Para la pregunta 2, exploremos las realidades abogacia. #LupusChat https://t.co/KcxRRSWMSJ | |
Friends AgainstLupus @AgainstLupus RT @CaringForLupus: A1 During the annual DC Hill event, patients and caregivers share their experiences with elected representatives and advocate for the necessity of better and new treatments for Lupus 🔬. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 Todos los años desde el diagnóstico de Miah, organizo un evento de Ceremonia 🎀 en Kearny NJ para celebrar el comienzo del Mes de Conciencia del Lupus en los Estados Unidos. #LupusChat https://t.co/Yspmz333j1 | |
Friends AgainstLupus @AgainstLupus RT @itsmorenamorena: @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Throughout the year both local and national organizations host trainings, awareness events, educational meetings, and community outreach events. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Jillian_Gomes: @Lupus_Chat A1. I am familiar with things like the Lupus Walk..and only recently started to try and find peer groups. #LupusChat | |
Carly by Nature @SynceNerd_Carli @raquelonpurpose @Lupus_Chat Lupus advocacy, but also any healthcare related campaign information is welcomed. 😊 #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A1. I'm familiar with the grassroots campaigns by both @LupusOrg and @LupusResearch. Both in Washington and at the community/state level: lobbying,races,events. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 A campaign I'm familiar with...is the #Lupuschat May Awareness month!!!! Every Sunday during May we host a Twitter chat at 3pm Eastern Time . https://t.co/DGbWJ3TDkr | |
#LupusChat @Lupus_Chat RT @CaringForLupus: 1. Muchos defensores de Lupus trabajan con sus representantes de la ciudad correspondientes para solicitar una Proclamación 📜 designando Mayo como el Mes de la Conciencia del Lupus en su ciudad. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1: A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May. | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A1. I'm familiar with the grassroots campaigns by both @LupusOrg and @LupusResearch. Both in Washington and at the community/state level: lobbying,races,events. #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: People often have their own ideas about what advocacy is and consists of. For Question 2, let’s explore the realities of the advocacy space. #LupusChat https://t.co/DaaGSVcOFJ | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 Annually around March different Lupus organizations host a in-person and online campaign in DC to advocate to increase funds for Lupus Research 🔬. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. During Lupus Awareness Month in May, #LupusChat hosts a chat every Sunday. | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat Thanks. 💜 #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat | |
itsmorenamorena @itsmorenamorena A1: Also, annual Lupus Walks put on by @LupusOrg chapters, and day of advocacy every year organized by @LupusGeorgia #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @katesattler: @Lupus_Chat I’m Kate in Portland. Diagnosed w lupus in 2018. Hmm...need to think a bit on the favorite tradition. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: Durante todo el año, las organizaciones locales y nacionales organizan capacitaciones, eventos de sensibilización, reuniones educativas y eventos de divulgación comunitaria. #LupusChat | |
#LupusChat @Lupus_Chat Q2: Qué es algo nuevo que aprendiste sobre abogacía el año pasado? #LupusChat https://t.co/2lgBp7Y0jw | |
#LupusChat @Lupus_Chat Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj | |
Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️ | |
Friends AgainstLupus @AgainstLupus RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️ | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : Meaning Lupus advocacy campaigns or any kind? #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: #LupusChat Co-host, @CaringForLupus, also hosts a ribbon cutting ceremony to kick off #LupusAwarenessMonth. | |
Tiffany ⁷ @TiffanyAndLupus RT @supacooladri: A1: A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat | |
UMass Lupus @UMassLupus A1: I have seen most of the major foundations (@LupusResearch LRA, @LupusOrg LFA) have petitions people can sign, and advocacy days where you can meet with your representatives on Capitol Hill. I participated in the @ImmunologyAAI public policy fellowship for research advocacy | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: People often have their own ideas about what advocacy is and consists of. For Question 2, let’s explore the realities of the advocacy space. #LupusChat https://t.co/DaaGSVcOFJ | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Durante todo el año, las organizaciones locales y nacionales organizan capacitaciones, eventos de sensibilización, reuniones educativas y eventos de divulgación comunitaria. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj | |
#LupusChat @Lupus_Chat RT @itsmorenamorena: A1: A1: Also, annual Lupus Walks put on by @LupusOrg chapters, and day of advocacy every year organized by @LupusGeorgia #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A1. I'm familiar with the grassroots campaigns by both @LupusOrg and @LupusResearch. Both in Washington and at the community/state level: lobbying,races,events. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A1. During Lupus Awareness Month in May, #LupusChat hosts a chat every Sunday. | |
Carly by Nature @SynceNerd_Carli @itsmorenamorena @Lupus_Chat Welcome back Stephanie. Always great to have you with us for #LupusChat. But also...sis, when we doing a fish fry? 👀 | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 During the annual DC Hill event, patients and caregivers share their experiences with elected representatives and advocate for the necessity of better and new treatments for Lupus 🔬. #LupusChat | |
itsmorenamorena @itsmorenamorena A1: And lots of other Twitter Chat campaigns, some of which I participate, that advocacy for chronic illness, disability, etc. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. The advocacy space is not near as accessible as it should be, especially for a space that is supposed to be FOR PATIENTS. #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj | |
Carly by Nature @SynceNerd_Carli A1: There are also a advocates that work with local and federal legislators to have Lupus Awareness Month proclamations and resolutions for their city and state. #LupusChat | |
UMass Lupus @UMassLupus RT @SynceNerd_Carli: A1: A1: En lo que respecta a la defensa del lupus, están los eventos Cumbre de defensa y Hill Day dirigidos por @LupusOrg y @LupusResearch. También hay un evento de promoción del estado de Nueva York organizado por @LADAOrg cada año. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A1: A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj | |
RaquelRoschell @raquelonpurpose RT @CaringForLupus: A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q2: Q2: Qué es algo nuevo que aprendiste sobre abogacía el año pasado? #LupusChat https://t.co/2lgBp7Y0jw | |
UMass Lupus @UMassLupus RT @CaringForLupus: A1 Durante el evento anual de DC Hill, los pacientes y cuidadores comparten sus experiencias con representantes electos y abogan por la necesidad de mejores y nuevos tratamientos para Lupus 🔬. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A2. The advocacy space is not near as accessible as it should be, especially for a space that is supposed to be FOR PATIENTS. #LupusChat | |
#LupusChat @Lupus_Chat RT @itsmorenamorena: A1: A1: And lots of other Twitter Chat campaigns, some of which I participate, that advocacy for chronic illness, disability, etc. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: There are also a advocates that work with local and federal legislators to have Lupus Awareness Month proclamations and resolutions for their city and state. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: También hay defensores que trabajan con legisladores locales y federales para tener proclamaciones y resoluciones del Mes de Conciencia del Lupus para su ciudad y estado. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A2: I learned that there are still major gaps that have not been filled when it comes to lupus advocacy. There is still so much more that can be done both physically & virtually. What currently exists is not enough. & I hope to help fill that gap. #LupusChat | |
UMass Lupus @UMassLupus RT @supacooladri: A1: A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat | |
Kate Sattler | Sweet Freeze @katesattler @Lupus_Chat Feel like #LupusChat is among the most powerful advocacy | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: I learned that there are still major gaps that have not been filled when it comes to lupus advocacy. There is still so much more that can be done both physically & virtually. What currently exists is not enough. & I hope to help fill that gap. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: También hay defensores que trabajan con legisladores locales y federales para tener proclamaciones y resoluciones del Mes de Conciencia del Lupus para su ciudad y estado. #LupusChat | |
UMass Lupus @UMassLupus RT @TiffanyAndLupus: A1: A1: I’m familiar with the large scale advocacy days that both @lupusorg & @lupusresearch host annually where they gather lupus patients all across the country to lobby in DC to secure finances to fund lupus research. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Xtel007: A2. The advocacy space is not near as accessible as it should be, especially for a space that is supposed to be FOR PATIENTS. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A2: A2: I learned that there are still major gaps that have not been filled when it comes to lupus advocacy. There is still so much more that can be done both physically & virtually. What currently exists is not enough. & I hope to help fill that gap. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: También hay defensores que trabajan con legisladores locales y federales para tener proclamaciones y resoluciones del Mes de Conciencia del Lupus para su ciudad y estado. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. I've also experienced how great it is when collaboration/support/fellowship happens among patient advocates. We can learn from each other how to work better with our respective communities. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: Muchos defensores también van a DC y sus Capitols estatales durante todo el año para trabajar en la aprobación de la legislación de salud clave a nivel local y federal. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: Many advocates also go to DC and their state Capitols throughout the year to work on getting key healthcare legislation passed on the local and federal level. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A2: Aprendí que todavía hay lagunas que no se han llenado cuando se trata de la promoción del lupus. Hay más que se puede hacer tanto físicamente como virtualmente. Lo que existe actualmente no es suficiente y espero ayudar a llenar ese vacío. #LupusChat | |
Carly by Nature @SynceNerd_Carli @Marilyn_Allen1 @UMBC Hey Marilyn!! Thanks so much for joining us for #LupusChat today! Appreciate all the work you do 💜 | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Many advocates also go to DC and their state Capitols throughout the year to work on getting key healthcare legislation passed on the local and federal level. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Muchos defensores también van a DC y sus Capitols estatales durante todo el año para trabajar en la aprobación de la legislación de salud clave a nivel local y federal. #LupusChat | |
itsmorenamorena @itsmorenamorena @TiffanyAndLupus What desserts have you had today so far? I need ideas for my next grocery delivery. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A2. I've also experienced how great it is when collaboration/support/fellowship happens among patient advocates. We can learn from each other how to work better with our respective communities. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @supacooladri: A1: A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: Aprendí que todavía hay lagunas que no se han llenado cuando se trata de la promoción del lupus. Hay más que se puede hacer tanto físicamente como virtualmente. Lo que existe actualmente no es suficiente y espero ayudar a llenar ese vacío. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 Durante el evento anual de DC Hill, los pacientes y cuidadores comparten sus experiencias con representantes electos y abogan por la necesidad de mejores y nuevos tratamientos para Lupus 🔬. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 Todos los años desde el diagnóstico de Miah, organizo un evento de Ceremonia 🎀 en Kearny NJ para celebrar el comienzo del Mes de Conciencia del Lupus en los Estados Unidos. #LupusChat https://t.co/Yspmz333j1 | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 . Many Lupus advocates work closely with their corresponding town representatives to request a Proclamation 📜 designating May as Lupus Awareness Month in their town. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: 1. Muchos defensores de Lupus trabajan con sus representantes de la ciudad correspondientes para solicitar una Proclamación 📜 designando Mayo como el Mes de la Conciencia del Lupus en su ciudad. #LupusChat | |
Hydrotroop91 @hydrotroop91 RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq | |
Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️ | |
Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: A1: A1: Also, annual Lupus Walks put on by @LupusOrg chapters, and day of advocacy every year organized by @LupusGeorgia #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Many advocates also go to DC and their state Capitols throughout the year to work on getting key healthcare legislation passed on the local and federal level. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Muchos defensores también van a DC y sus Capitols estatales durante todo el año para trabajar en la aprobación de la legislación de salud clave a nivel local y federal. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: A1: A1: And lots of other Twitter Chat campaigns, some of which I participate, that advocacy for chronic illness, disability, etc. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: También hay defensores que trabajan con legisladores locales y federales para tener proclamaciones y resoluciones del Mes de Conciencia del Lupus para su ciudad y estado. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2. I've also experienced how great it is when collaboration/support/fellowship happens among patient advocates. We can learn from each other how to work better with our respective communities. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: There are also a advocates that work with local and federal legislators to have Lupus Awareness Month proclamations and resolutions for their city and state. #LupusChat | |
Caring For Lupus @CaringForLupus RT @itsmorenamorena: A1: A1: And lots of other Twitter Chat campaigns, some of which I participate, that advocacy for chronic illness, disability, etc. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Durante todo el año, las organizaciones locales y nacionales organizan capacitaciones, eventos de sensibilización, reuniones educativas y eventos de divulgación comunitaria. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: Many advocates also go to DC and their state Capitols throughout the year to work on getting key healthcare legislation passed on the local and federal level. #LupusChat | |
Kate Sattler | Sweet Freeze @katesattler @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more | |
Caring For Lupus @CaringForLupus RT @itsmorenamorena: A1: A1: Also, annual Lupus Walks put on by @LupusOrg chapters, and day of advocacy every year organized by @LupusGeorgia #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A1. During Lupus Awareness Month in May, #LupusChat hosts a chat every Sunday. | |
Carly by Nature @SynceNerd_Carli A2: One thing that I learned was how exclusive the advocacy space is. You would think that since it is designed to help patients, that it would include more patients in many of the processes. This isn’t the case. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: Hay defensores que asisten a reuniones de investigación y conferencias durante todo el año y difunden la información discutida en sus comunidades. Esto ayuda a mantener informados y educados a los pacientes y a otras personas. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: There are advocates that attend research meetings and conferences throughout the year and disseminate the information discussed, to their communities. This helps keep patients and others informed and educated. #LupusChat | |
Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A1. I'm familiar with the grassroots campaigns by both @LupusOrg and @LupusResearch. Both in Washington and at the community/state level: lobbying,races,events. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Throughout the year both local and national organizations host trainings, awareness events, educational meetings, and community outreach events. #LupusChat | |
#LupusChat @Lupus_Chat RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: One thing that I learned was how exclusive the advocacy space is. You would think that since it is designed to help patients, that it would include more patients in many of the processes. This isn’t the case. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: There are advocates that attend research meetings and conferences throughout the year and disseminate the information discussed, to their communities. This helps keep patients and others informed and educated. #LupusChat | |
Carly by Nature @SynceNerd_Carli Ayyyeee!!! 🔥🔥🔥 #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A2. The advocacy space is not near as accessible as it should be, especially for a space that is supposed to be FOR PATIENTS. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️ | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2: A2: I learned that there are still major gaps that have not been filled when it comes to lupus advocacy. There is still so much more that can be done both physically & virtually. What currently exists is not enough. & I hope to help fill that gap. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A2. I've also experienced how great it is when collaboration/support/fellowship happens among patient advocates. We can learn from each other how to work better with our respective communities. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2: A2: Aprendí que todavía hay lagunas que no se han llenado cuando se trata de la promoción del lupus. Hay más que se puede hacer tanto físicamente como virtualmente. Lo que existe actualmente no es suficiente y espero ayudar a llenar ese vacío. #LupusChat | |
Caring For Lupus @CaringForLupus RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Hay defensores que asisten a reuniones de investigación y conferencias durante todo el año y difunden la información discutida en sus comunidades. Esto ayuda a mantener informados y educados a los pacientes y a otras personas. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: One thing that I learned was how exclusive the advocacy space is. You would think that since it is designed to help patients, that it would include more patients in many of the processes. This isn’t the case. #LupusChat | |
itsmorenamorena @itsmorenamorena RT @CaringForLupus: A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: One thing that I learned was how exclusive the advocacy space is. You would think that since it is designed to help patients, that it would include more patients in many of the processes. This isn’t the case. #LupusChat | |
RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A1: A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat | |
Carly by Nature @SynceNerd_Carli A2: Una cosa que aprendí fue cuán exclusivo es el espacio de abogacia. Se podría pensar que, dado que está diseñado para ayudar a los pacientes, incluiría a más pacientes en muchos de los procesos. Este no es el caso. #LupusChat | |
#LupusChat @Lupus_Chat Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/axPKzSwy2q | |
#LupusChat @Lupus_Chat Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/kqTSq4s2mY | |
Tiffany ⁷ @TiffanyAndLupus RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more | |
Friends AgainstLupus @AgainstLupus RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more | |
Kate Sattler | Sweet Freeze @katesattler @TiffanyAndLupus A2 I agree and same!! #LupusChat | |
Caring For Lupus @CaringForLupus A2 During the last year's, I have learned that we need more patient representation in Seminars, Conferences, Research meetings, etc. #Lupuschat | |
Carly by Nature @SynceNerd_Carli RT @SynceNerd_Carli: Aye! It's #LupusChat Sunday. Sooooo y'all already know, for the next hour and change that's all the content coming from over here. Please, mute as needed or stick around and learn something. It's up to you. https://t.co/GPsGpJz69b | |
Caring For Lupus @CaringForLupus A2 Durante el año pasado, aprendí que necesitamos más representación del paciente en seminarios, conferencias, reuniones de investigación, etc. #Lupuschat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: Qué es algo nuevo que aprendiste sobre abogacía el año pasado? #LupusChat https://t.co/2lgBp7Y0jw | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A2 During the last year's, I have learned that we need more patient representation in Seminars, Conferences, Research meetings, etc. #Lupuschat | |
Jillian G @Jillian_Gomes @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/axPKzSwy2q | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 💜 | |
Tiffany ⁷ @TiffanyAndLupus RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/kqTSq4s2mY | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: Una cosa que aprendí fue cuán exclusivo es el espacio de abogacia. Se podría pensar que, dado que está diseñado para ayudar a los pacientes, incluiría a más pacientes en muchos de los procesos. Este no es el caso. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov | |
Carly by Nature @SynceNerd_Carli A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat | |
#LupusChat @Lupus_Chat Ahora que hemos discutido las complejidades de aborgacia, para la Pregunta 3 nos centraremos en las diferentes formas en que podemos participar en el proceso. #LupusChat https://t.co/eTB4Vn1yyO | |
#LupusChat @Lupus_Chat Now that we’ve discussed the complexities of advocacy, for Question 3 we’ll move onto the different ways we can play a part in the process. #LupusChat https://t.co/08ESpXTVUB | |
itsmorenamorena @itsmorenamorena @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat | |
#LupusChat @Lupus_Chat RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/axPKzSwy2q | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/axPKzSwy2q | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2 During the last year's, I have learned that we need more patient representation in Seminars, Conferences, Research meetings, etc. #Lupuschat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Las personas a menudo tienen sus propias ideas sobre lo que significa ser un defensor y lo que es. Para la pregunta 2, exploremos las realidades abogacia. #LupusChat https://t.co/KcxRRSWMSJ | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: People often have their own ideas about what advocacy is and consists of. For Question 2, let’s explore the realities of the advocacy space. #LupusChat https://t.co/DaaGSVcOFJ | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: Una cosa que aprendí fue cuán exclusivo es el espacio de abogacia. Se podría pensar que, dado que está diseñado para ayudar a los pacientes, incluiría a más pacientes en muchos de los procesos. Este no es el caso. #LupusChat | |
Adri @supacooladri A2: I really learned that advocacy starts with me. I need to start and be the change I want to see. I also notice how much of need there is for more support. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A1. I'm familiar with the grassroots campaigns by both @LupusOrg and @LupusResearch. Both in Washington and at the community/state level: lobbying,races,events. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 You mean A2, I think #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A2: A2: Aprendí que todavía hay lagunas que no se han llenado cuando se trata de la promoción del lupus. Hay más que se puede hacer tanto físicamente como virtualmente. Lo que existe actualmente no es suficiente y espero ayudar a llenar ese vacío. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Now that we’ve discussed the complexities of advocacy, for Question 3 we’ll move onto the different ways we can play a part in the process. #LupusChat https://t.co/08ESpXTVUB | |
itsmorenamorena @itsmorenamorena RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat | |
UMass Lupus @UMassLupus And local groups like @LupusNE host walks. I think local groups could increase advocacy by including info at these events #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat | |
Carly by Nature @SynceNerd_Carli A2: También aprendí que hay organizaciones que no hacen que sus eventos sean tan accesibles para las personas como deberían ser. Esto necesita cambiar. #LupusChat | |
#LupusChat @Lupus_Chat Q3: Qué tipos de métodos puedes usar para que tu voz se escuche? #LupusChat https://t.co/dwTmfmWubW | |
#LupusChat @Lupus_Chat Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM | |
Caring For Lupus @CaringForLupus RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat | |
Caring For Lupus @CaringForLupus RT @supacooladri: A2: A2: I really learned that advocacy starts with me. I need to start and be the change I want to see. I also notice how much of need there is for more support. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @SynceNerd_Carli: A2: A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat | |
Caring For Lupus @CaringForLupus RT @UMassLupus: And local groups like @LupusNE host walks. I think local groups could increase advocacy by including info at these events #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: También aprendí que hay organizaciones que no hacen que sus eventos sean tan accesibles para las personas como deberían ser. Esto necesita cambiar. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A2. More needs to be done. Especially at the state and local level. There's nothing here in NM,for example. #LupusChat | |
#LupusChat @Lupus_Chat RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat | |
#LupusChat @Lupus_Chat RT @supacooladri: A2: A2: I really learned that advocacy starts with me. I need to start and be the change I want to see. I also notice how much of need there is for more support. #LupusChat | |
#LupusChat @Lupus_Chat RT @UMassLupus: And local groups like @LupusNE host walks. I think local groups could increase advocacy by including info at these events #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM | |
itsmorenamorena @itsmorenamorena RT @supacooladri: A2: A2: I really learned that advocacy starts with me. I need to start and be the change I want to see. I also notice how much of need there is for more support. #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A1: A1: There are also a advocates that work with local and federal legislators to have Lupus Awareness Month proclamations and resolutions for their city and state. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. There are many many ways to advocate. You can advocate simply by educating people about Lupus and chronic illness. You can speak up at your doctor’s office and make sure your concerns are heard. #LupusChat | |
Carly by Nature @SynceNerd_Carli A2: Also, there is a lot that goes into meeting with legislators on the Hill. It is both physically and mentally demanding. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM | |
UMass Lupus @UMassLupus It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q3: Q3: Qué tipos de métodos puedes usar para que tu voz se escuche? #LupusChat https://t.co/dwTmfmWubW | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: También aprendí que hay organizaciones que no hacen que sus eventos sean tan accesibles para las personas como deberían ser. Esto necesita cambiar. #LupusChat | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A2. More needs to be done. Especially at the state and local level. There's nothing here in NM,for example. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A3. There are many many ways to advocate. You can advocate simply by educating people about Lupus and chronic illness. You can speak up at your doctor’s office and make sure your concerns are heard. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: Also, there is a lot that goes into meeting with legislators on the Hill. It is both physically and mentally demanding. #LupusChat | |
#LupusChat @Lupus_Chat RT @UMassLupus: It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @UMassLupus: It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @UMassLupus: It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: Also, there is a lot that goes into meeting with legislators on the Hill. It is both physically and mentally demanding. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A3. There are many many ways to advocate. You can advocate simply by educating people about Lupus and chronic illness. You can speak up at your doctor’s office and make sure your concerns are heard. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Xtel007: A3. There are many many ways to advocate. You can advocate simply by educating people about Lupus and chronic illness. You can speak up at your doctor’s office and make sure your concerns are heard. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A2: A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat | |
Carly by Nature @SynceNerd_Carli A2: Además, se necesita mucho para reunirse con legisladores en la colina. Es tanto física como mentalmente exigente. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat | |
Carly by Nature @SynceNerd_Carli #LupusChat I mean.... https://t.co/B7vVEAzjvP | |
RaquelRoschell @raquelonpurpose @Lupus_Chat A2 : I am learning more about initiatives and campaigns. I have gotten invites to summits and conferences I never knew about. #LupusChat | |
UMass Lupus @UMassLupus A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM | |
#LupusChat @Lupus_Chat RT @UMassLupus: A2: A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Thank you, thank you very much. | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I am learning more about initiatives and campaigns. I have gotten invites to summits and conferences I never knew about. #LupusChat | |
Carly by Nature @SynceNerd_Carli @katesattler @Lupus_Chat We appreciate you and your continued support, Kate! #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat | |
Carly by Nature @SynceNerd_Carli A2: There is still so much work to be done in the healthcare space and my hope is that everyone can come together to make REAL change. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A3: Honestly, talking about lupus in whatever way or form you feel most comfortable is a way to make your voice heard. Whether in person or online in forums or on social media, speaking openly about your experiences w/ lupus is a way to vent, inform, & find community. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @UMassLupus: A2: A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/axPKzSwy2q | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/kqTSq4s2mY | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2 During the last year's, I have learned that we need more patient representation in Seminars, Conferences, Research meetings, etc. #Lupuschat | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2 Durante el año pasado, aprendí que necesitamos más representación del paciente en seminarios, conferencias, reuniones de investigación, etc. #Lupuschat | |
Carly by Nature @SynceNerd_Carli RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: Honestly, talking about lupus in whatever way or form you feel most comfortable is a way to make your voice heard. Whether in person or online in forums or on social media, speaking openly about your experiences w/ lupus is a way to vent, inform, & find community. #LupusChat | |
itsmorenamorena @itsmorenamorena All of this👇🏾💜 #LupusChat | |
Jillian G @Jillian_Gomes @Lupus_Chat A3. The most accessible: Social Media sharing your experience..participating in local programs like the walk..Workshops..#LupusChat | |
Carly by Nature @SynceNerd_Carli A2: Todavía queda mucho trabajo por hacer en el espacio de la atención médica y espero que todos puedan unirse para hacer un cambio REAL. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A3: Hablar sobre el lupus de todos modos te sientes más cómodo es una manera de hacer oír tu voz. Ya sea en persona o en línea o en las redes sociales, hablar abiertamente sobre el lupus es una manera de ventilar, informar y encontrar comunidad. #LupusChat | |
itsmorenamorena @itsmorenamorena RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: There is still so much work to be done in the healthcare space and my hope is that everyone can come together to make REAL change. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A2: A2: There is still so much work to be done in the healthcare space and my hope is that everyone can come together to make REAL change. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A3: A3: Honestly, talking about lupus in whatever way or form you feel most comfortable is a way to make your voice heard. Whether in person or online in forums or on social media, speaking openly about your experiences w/ lupus is a way to vent, inform, & find community. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: All of this👇🏾💜 #LupusChat | |
#LupusChat @Lupus_Chat RT @Jillian_Gomes: @Lupus_Chat A3. The most accessible: @Lupus_Chat A3. The most accessible: Social Media sharing your experience..participating in local programs like the walk..Workshops..#LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A1. Social media! #LupusChat. Twitter. Instagram. Even YouTube. And of course the old school snail mail,e-mail and (pre-coronavirus) meet and greet. | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: Hablar sobre el lupus de todos modos te sientes más cómodo es una manera de hacer oír tu voz. Ya sea en persona o en línea o en las redes sociales, hablar abiertamente sobre el lupus es una manera de ventilar, informar y encontrar comunidad. #LupusChat | |
Caring For Lupus @CaringForLupus A3 Locally, you can schedule a meeting with your town representatives and share your experience with Lupus. #LupusChat https://t.co/XWHopy7vvA | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: Todavía queda mucho trabajo por hacer en el espacio de la atención médica y espero que todos puedan unirse para hacer un cambio REAL. #LupusChat | |
Carly by Nature @SynceNerd_Carli @Jillian_Gomes @Lupus_Chat Agreed! This has been one of the biggest struggles. My goal is to try and provide these resources within my community to try to help. #LupusChat | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A1. Social media! #LupusChat. Twitter. Instagram. Even YouTube. And of course the old school snail mail,e-mail and (pre-coronavirus) meet and greet. | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Now that we’ve discussed the complexities of advocacy, for Question 3 we’ll move onto the different ways we can play a part in the process. #LupusChat https://t.co/08ESpXTVUB | |
The Lupus Rainbow @thelupusrainbow A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus. | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A3 Locally, you can schedule a meeting with your town representatives and share your experience with Lupus. #LupusChat https://t.co/XWHopy7vvA | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Ahora que hemos discutido las complejidades de aborgacia, para la Pregunta 3 nos centraremos en las diferentes formas en que podemos participar en el proceso. #LupusChat https://t.co/eTB4Vn1yyO | |
Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: @Jillian_Gomes @Lupus_Chat Agreed! This has been one of the biggest struggles. My goal is to try and provide these resources within my community to try to help. #LupusChat | |
#LupusChat @Lupus_Chat RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus. | |
Carly by Nature @SynceNerd_Carli RT @UMassLupus: It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat | |
Caring For Lupus @CaringForLupus A3 Localmente, puede usted programar una reunión con los representantes de su ciudad y compartir su experiencia con Lupus. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @UMassLupus: And local groups like @LupusNE host walks. I think local groups could increase advocacy by including info at these events #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Yes, this!!!!!! #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat | |
Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A1. Social media! #LupusChat. Twitter. Instagram. Even YouTube. And of course the old school snail mail,e-mail and (pre-coronavirus) meet and greet. | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat | |
Caring For Lupus @CaringForLupus A3 Raise awareness and communicate with lawmakers in different ways : in-person meetings, phone calls, emails, letters and social media platforms such as Twitter and Facebook. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus. | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I am learning more about initiatives and campaigns. I have gotten invites to summits and conferences I never knew about. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus @itsmorenamorena I've only had some nutter butter cookies today, but I plan to have some chocolate cake later after lunch! #LupusChat | |
itsmorenamorena @itsmorenamorena RT @SynceNerd_Carli: A2: A2: One thing that I learned was how exclusive the advocacy space is. You would think that since it is designed to help patients, that it would include more patients in many of the processes. This isn’t the case. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @UMassLupus: A2: A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I am learning more about initiatives and campaigns. I have gotten invites to summits and conferences I never knew about. #LupusChat | |
itsmorenamorena @itsmorenamorena RT @CaringForLupus: A3 Raise awareness and communicate with lawmakers in different ways : A3 Raise awareness and communicate with lawmakers in different ways : in-person meetings, phone calls, emails, letters and social media platforms such as Twitter and Facebook. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus. | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A3 Raise awareness and communicate with lawmakers in different ways : A3 Raise awareness and communicate with lawmakers in different ways : in-person meetings, phone calls, emails, letters and social media platforms such as Twitter and Facebook. #LupusChat | |
Caring For Lupus @CaringForLupus A3 Concienciar y comunicarse con los legisladores de diferentes maneras: reuniones en persona, llamadas telefónicas, correos electrónicos, cartas y plataformas de redes sociales como Twitter y Facebook. #LupusChat | |
The Lupus Rainbow @thelupusrainbow RT @UMassLupus: It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: Qué tipos de métodos puedes usar para que tu voz se escuche? #LupusChat https://t.co/dwTmfmWubW | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I am learning more about initiatives and campaigns. I have gotten invites to summits and conferences I never knew about. #LupusChat | |
Caring For Lupus @CaringForLupus RT @UMassLupus: A2: A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @UMassLupus: And local groups like @LupusNE host walks. I think local groups could increase advocacy by including info at these events #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: There is still so much work to be done in the healthcare space and my hope is that everyone can come together to make REAL change. #LupusChat | |
The Lupus Rainbow @thelupusrainbow RT @SynceNerd_Carli: @Jillian_Gomes @Lupus_Chat Agreed! This has been one of the biggest struggles. My goal is to try and provide these resources within my community to try to help. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: Honestly, talking about lupus in whatever way or form you feel most comfortable is a way to make your voice heard. Whether in person or online in forums or on social media, speaking openly about your experiences w/ lupus is a way to vent, inform, & find community. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A3 Localmente, puede usted programar una reunión con los representantes de su ciudad y compartir su experiencia con Lupus. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Jillian_Gomes: @Lupus_Chat A3. The most accessible: @Lupus_Chat A3. The most accessible: Social Media sharing your experience..participating in local programs like the walk..Workshops..#LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: Hablar sobre el lupus de todos modos te sientes más cómodo es una manera de hacer oír tu voz. Ya sea en persona o en línea o en las redes sociales, hablar abiertamente sobre el lupus es una manera de ventilar, informar y encontrar comunidad. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: Todavía queda mucho trabajo por hacer en el espacio de la atención médica y espero que todos puedan unirse para hacer un cambio REAL. #LupusChat | |
Caring For Lupus @CaringForLupus RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus. | |
RaquelRoschell @raquelonpurpose RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A3 Localmente, puede usted programar una reunión con los representantes de su ciudad y compartir su experiencia con Lupus. #LupusChat | |
Carly by Nature @SynceNerd_Carli @SheWhoRises @Lupus_Chat I’m here to tell you that it DOES work. Each and every time. We see and support you. 💜💜💜 #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: Because advocacy is inclusive of anything done to raise awareness, the options are plenty. #LupusChat | |
#LupusChat @Lupus_Chat A medida que el mundo cambia, también cambian las formas en que podemos participar en los abogacia. Exploremos esto más a fondo en la pregunta 4. #LupusChat https://t.co/jd0Gp0hvGC | |
#LupusChat @Lupus_Chat As the world changes, so do the ways we can participate in advocacy. Let’s explore this more in Question 4. #LupusChat https://t.co/vuQdtV1bLw | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: Honestly, talking about lupus in whatever way or form you feel most comfortable is a way to make your voice heard. Whether in person or online in forums or on social media, speaking openly about your experiences w/ lupus is a way to vent, inform, & find community. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A3 Raise awareness and communicate with lawmakers in different ways : A3 Raise awareness and communicate with lawmakers in different ways : in-person meetings, phone calls, emails, letters and social media platforms such as Twitter and Facebook. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: reuniones en persona, llamadas telefónicas, correos electrónicos, cartas y plataformas de redes sociales como Twitter y Facebook. #LupusChat | |
Adri @supacooladri A3: I find that social media is a great tool. I also participate in anything that may be in my area that helps create more of a lupus community #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: All of this👇🏾💜 #LupusChat | |
Jillian G @Jillian_Gomes Facts!! | |
Carly by Nature @SynceNerd_Carli RT @Jillian_Gomes: @Lupus_Chat A3. The most accessible: @Lupus_Chat A3. The most accessible: Social Media sharing your experience..participating in local programs like the walk..Workshops..#LupusChat | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: Hablar sobre el lupus de todos modos te sientes más cómodo es una manera de hacer oír tu voz. Ya sea en persona o en línea o en las redes sociales, hablar abiertamente sobre el lupus es una manera de ventilar, informar y encontrar comunidad. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A1. Social media! #LupusChat. Twitter. Instagram. Even YouTube. And of course the old school snail mail,e-mail and (pre-coronavirus) meet and greet. | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3 Locally, you can schedule a meeting with your town representatives and share your experience with Lupus. #LupusChat https://t.co/XWHopy7vvA | |
#LupusChat @Lupus_Chat RT @supacooladri: A3: A3: I find that social media is a great tool. I also participate in anything that may be in my area that helps create more of a lupus community #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Because advocacy is inclusive of anything done to raise awareness, the options are plenty. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus. | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: As the world changes, so do the ways we can participate in advocacy. Let’s explore this more in Question 4. #LupusChat https://t.co/vuQdtV1bLw | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3 Localmente, puede usted programar una reunión con los representantes de su ciudad y compartir su experiencia con Lupus. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: Yes, this!!!!!! #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: Debido a que la promoción incluye todo lo que se haga para crear conciencia, las opciones son muchas. #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat | |
#LupusChat @Lupus_Chat Q4: Cómo ha cambiado la abogacía con la tecnología a través de los años? Sientes que es más o menos accesible? #LupusChat https://t.co/cLHcuInu96 | |
#LupusChat @Lupus_Chat Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3 Raise awareness and communicate with lawmakers in different ways : A3 Raise awareness and communicate with lawmakers in different ways : in-person meetings, phone calls, emails, letters and social media platforms such as Twitter and Facebook. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. Thanks to technology you can now participate in online campaigns right from home (or anywhere). You can access your elected officials’ social media pages. You can talk about your Lupus experience to your followers. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat | |
itsmorenamorena @itsmorenamorena RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat | |
RaquelRoschell @raquelonpurpose @Lupus_Chat A3 : Engage elected officials. They work for us. Social media. Organize community events. #LupusChat | |
Carly by Nature @SynceNerd_Carli @TiffanyAndLupus @itsmorenamorena You bringing me some cake, boo? #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: reuniones en persona, llamadas telefónicas, correos electrónicos, cartas y plataformas de redes sociales como Twitter y Facebook. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A4. Thanks to technology you can now participate in online campaigns right from home (or anywhere). You can access your elected officials’ social media pages. You can talk about your Lupus experience to your followers. #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe | |
itsmorenamorena @itsmorenamorena RT @SynceNerd_Carli: A3: A3: Because advocacy is inclusive of anything done to raise awareness, the options are plenty. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat *A3* #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Engage elected officials. They work for us. Social media. Organize community events. #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: Puede llamar o reunirse con legisladores, hablar sobre el lupus y las enfermedades crónicas en línea y en persona con otros, también puede organizar eventos para recaudar fondos. #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A3: A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat | |
Carly by Nature @SynceNerd_Carli #LupusChat A2 👇🏾 | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: Puede llamar o reunirse con legisladores, hablar sobre el lupus y las enfermedades crónicas en línea y en persona con otros, también puede organizar eventos para recaudar fondos. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Puede llamar o reunirse con legisladores, hablar sobre el lupus y las enfermedades crónicas en línea y en persona con otros, también puede organizar eventos para recaudar fondos. #LupusChat | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Engage elected officials. They work for us. Social media. Organize community events. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A4. Thanks to technology you can now participate in online campaigns right from home (or anywhere). You can access your elected officials’ social media pages. You can talk about your Lupus experience to your followers. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: A medida que el mundo cambia, también cambian las formas en que podemos participar en los abogacia. Exploremos esto más a fondo en la pregunta 4. #LupusChat https://t.co/jd0Gp0hvGC | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As the world changes, so do the ways we can participate in advocacy. Let’s explore this more in Question 4. #LupusChat https://t.co/vuQdtV1bLw | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: Debido a que la promoción incluye todo lo que se haga para crear conciencia, las opciones son muchas. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @supacooladri: A3: A3: I find that social media is a great tool. I also participate in anything that may be in my area that helps create more of a lupus community #LupusChat | |
Caring For Lupus @CaringForLupus RT @supacooladri: A3: A3: I find that social media is a great tool. I also participate in anything that may be in my area that helps create more of a lupus community #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: Because advocacy is inclusive of anything done to raise awareness, the options are plenty. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4: Q4: Cómo ha cambiado la abogacía con la tecnología a través de los años? Sientes que es más o menos accesible? #LupusChat https://t.co/cLHcuInu96 | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3: A3: Because advocacy is inclusive of anything done to raise awareness, the options are plenty. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe | |
Carly by Nature @SynceNerd_Carli A3: La promoción también incluye ser un defensor de uno mismo. Esto significa que incluso al hablar por usted mismo en el médico, la escuela o el trabajo, está contribuyendo al discurso. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat | |
Rev. Dr. 4WheelWorkout @4WheelWorkOut I like to be assertive. It's served me well to just speak and speak plainly to be heard and listened to. Online or in person, it's what has worked for me. | |
Carly by Nature @SynceNerd_Carli @AngiecarterUK Thanks for sharing. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A4. Thanks to technology you can now participate in online campaigns right from home (or anywhere). You can access your elected officials’ social media pages. You can talk about your Lupus experience to your followers. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. Thanks to technology you can now participate in online campaigns right from home (or anywhere). You can access your elected officials’ social media pages. You can talk about your Lupus experience to your followers. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Engage elected officials. They work for us. Social media. Organize community events. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Engage elected officials. They work for us. Social media. Organize community events. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: reuniones en persona, llamadas telefónicas, correos electrónicos, cartas y plataformas de redes sociales como Twitter y Facebook. #LupusChat | |
The Lupus Rainbow @thelupusrainbow RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @SynceNerd_Carli: A3: A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: La promoción también incluye ser un defensor de uno mismo. Esto significa que incluso al hablar por usted mismo en el médico, la escuela o el trabajo, está contribuyendo al discurso. #LupusChat | |
RaquelRoschell @raquelonpurpose RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus. | |
Tiffany ⁷ @TiffanyAndLupus A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot A1: my doctors, friends and family. The #lupus groups and organizations aren’t usually that helpful tbh #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat | |
Jillian G @Jillian_Gomes @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @MizJfromtheDot: A1: A1: my doctors, friends and family. The #lupus groups and organizations aren’t usually that helpful tbh #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: La promoción también incluye ser un defensor de uno mismo. Esto significa que incluso al hablar por usted mismo en el médico, la escuela o el trabajo, está contribuyendo al discurso. #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat | |
#LupusChat @Lupus_Chat RT @MizJfromtheDot: A1: A1: my doctors, friends and family. The #lupus groups and organizations aren’t usually that helpful tbh #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Agreed. All of that is advocacy. Researching and learning for yourself is, talking to other is, being in community with fellow patients, all, advocacy. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Jillian_Gomes: @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat | |
Adri @supacooladri A4: I feel like technology has been a gamechanger for me. For so long in many situations I felt alone but technology allows me to connect with so many people that truly understand how I'm feeling #LupusChat being one of them. | |
#LupusChat @Lupus_Chat RT @Jillian_Gomes: @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat | |
Carly by Nature @SynceNerd_Carli @Xtel007 And do. #LupusChat https://t.co/I6pywOV8c5 | |
Tiffany ⁷ @TiffanyAndLupus A4: Hay campañas en línea como #LupusEadvocate de organizaciones nacionales de lupus donde puede escribir cartas y llamar a sus legisladores locales para unirse al caucus del lupus o pedir una proclamación para conmemorar mayo como mes de concienciación sobre el lupus #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A4: A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat | |
itsmorenamorena @itsmorenamorena RT @Jillian_Gomes: @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: Agreed. All of that is advocacy. Researching and learning for yourself is, talking to other is, being in community with fellow patients, all, advocacy. #LupusChat | |
#LupusChat @Lupus_Chat RT @supacooladri: A4: A4: I feel like technology has been a gamechanger for me. For so long in many situations I felt alone but technology allows me to connect with so many people that truly understand how I'm feeling #LupusChat being one of them. | |
itsmorenamorena @itsmorenamorena RT @TiffanyAndLupus: A4: A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: Hay campañas en línea como #LupusEadvocate de organizaciones nacionales de lupus donde puede escribir cartas y llamar a sus legisladores locales para unirse al caucus del lupus o pedir una proclamación para conmemorar mayo como mes de concienciación sobre el lupus #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe | |
Jillian G @Jillian_Gomes @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat | |
itsmorenamorena @itsmorenamorena RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @MizJfromtheDot: A2: A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat | |
#LupusChat @Lupus_Chat A3 #LupusChat 👇🏾 | |
Friends AgainstLupus @AgainstLupus RT @MizJfromtheDot: A2: A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Jillian_Gomes: @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Jillian_Gomes: @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat | |
#LupusChat @Lupus_Chat RT @Jillian_Gomes: @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat | |
#LupusChat @Lupus_Chat RT @MizJfromtheDot: A2: A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat | |
itsmorenamorena @itsmorenamorena @SynceNerd_Carli @TiffanyAndLupus Yaaassss for the chocolate cake! #LupusChat | |
UMass Lupus @UMassLupus A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat | |
Carly by Nature @SynceNerd_Carli A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat | |
#LupusChat @Lupus_Chat El trabajo de abogacia puede tener muchos obstáculos en función de las percepciones de los demás que pueden dificultar a algunos. Exploraremos esto más en la Pregunta 5. #LupusChat https://t.co/yG9FVgrWLm | |
#LupusChat @Lupus_Chat Advocacy work can have many hurdles based on others’ perceptions that may make it difficult for some. We’ll explore this more in Question 5. #LupusChat https://t.co/38mbD7bVME | |
#LupusChat @Lupus_Chat @thelupusrainbow @katesattler Thank you both for all the #LupusChat love 💗 | |
Tiffany ⁷ @TiffanyAndLupus RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat | |
Kate Sattler | Sweet Freeze @katesattler @Lupus_Chat Q3 I can contact my reps. I can work behind the scenes to support and amplify lupus leaders. I can design campaigns and materials to educate people on lupus and how it impacts our lives. #LupusChat | |
#LupusChat @Lupus_Chat RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat | |
Rev. Dr. 4WheelWorkout @4WheelWorkOut RT @Lupus_Chat: El trabajo de abogacia puede tener muchos obstáculos en función de las percepciones de los demás que pueden dificultar a algunos. Exploraremos esto más en la Pregunta 5. #LupusChat https://t.co/yG9FVgrWLm | |
#LupusChat @Lupus_Chat RT @katesattler: @Lupus_Chat Q3 I can contact my reps. I can work behind the scenes to support and amplify lupus leaders. I can design campaigns and materials to educate people on lupus and how it impacts our lives. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @katesattler: @Lupus_Chat Q3 I can contact my reps. I can work behind the scenes to support and amplify lupus leaders. I can design campaigns and materials to educate people on lupus and how it impacts our lives. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat | |
Carly by Nature @SynceNerd_Carli A4: Afortunadamente, la tecnología ha permitido a quienes no pueden abandonar sus hogares participar en eventos que consideran importantes. #LupusChat | |
#LupusChat @Lupus_Chat Q5: Cuáles son algunos de los estigmas asociados con la (abogacía) defensa de usted mismo o de otros? #LupusChat https://t.co/bvj25Vx32l | |
#LupusChat @Lupus_Chat Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Advocacy work can have many hurdles based on others’ perceptions that may make it difficult for some. We’ll explore this more in Question 5. #LupusChat https://t.co/38mbD7bVME | |
Caring For Lupus @CaringForLupus A4 Social Media has changed the Advocacy over the past decade. As the years continue to progress, these platforms increasingly influence how citizens and advocacy organizations engage online #Lupuschat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Advocacy work can have many hurdles based on others’ perceptions that may make it difficult for some. We’ll explore this more in Question 5. #LupusChat https://t.co/38mbD7bVME | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A4 Social Media has changed the Advocacy over the past decade. As the years continue to progress, these platforms increasingly influence how citizens and advocacy organizations engage online #Lupuschat | |
MizJ 🇨🇦 @MizJfromtheDot A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb | |
#LupusChat @Lupus_Chat RT @MizJfromtheDot: A3: A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @MizJfromtheDot: A3: A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 Social Media has changed the Advocacy over the past decade. As the years continue to progress, these platforms increasingly influence how citizens and advocacy organizations engage online #Lupuschat | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Afortunadamente, la tecnología ha permitido a quienes no pueden abandonar sus hogares participar en eventos que consideran importantes. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q5: Q5: Cuáles son algunos de los estigmas asociados con la (abogacía) defensa de usted mismo o de otros? #LupusChat https://t.co/bvj25Vx32l | |
Caring For Lupus @CaringForLupus A4 Social Media ha cambiado la promoción de abogacía en la última década. A medida que los años continúan progresando, estas plataformas influyen cada vez más en cómo los ciudadanos y las organizaciones de defensa participan en línea #Lupuschat | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q5: Q5: Cuáles son algunos de los estigmas asociados con la (abogacía) defensa de usted mismo o de otros? #LupusChat https://t.co/bvj25Vx32l | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat | |
Carly by Nature @SynceNerd_Carli A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest. | |
Rev. Dr. 4WheelWorkout @4WheelWorkOut A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A4 Social Media ha cambiado la promoción de abogacía en la última década. A medida que los años continúan progresando, estas plataformas influyen cada vez más en cómo los ciudadanos y las organizaciones de defensa participan en línea #Lupuschat | |
#LupusChat @Lupus_Chat RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @MizJfromtheDot: A3: A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest. | |
UMass Lupus @UMassLupus @MizJfromtheDot Yes sometimes a disconnect, I think they get too busy? But they mean well! We should try to brainstorm ways to keep in touch with the large orgs #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest. | |
MizJ 🇨🇦 @MizJfromtheDot RT @SynceNerd_Carli: A4: A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest. | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat | |
RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe | |
Tiffany ⁷ @TiffanyAndLupus RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A4: A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A4: A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest. | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A4: A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @MizJfromtheDot: A1: A1: my doctors, friends and family. The #lupus groups and organizations aren’t usually that helpful tbh #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Jillian_Gomes: @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: Agreed. All of that is advocacy. Researching and learning for yourself is, talking to other is, being in community with fellow patients, all, advocacy. #LupusChat | |
Carly by Nature @SynceNerd_Carli A4: #LupusChat en sí mismo, es un ejemplo de cómo la tecnología ha mejorado nuestra capacidad de trascender las barreras físicas. Podemos mantener conversaciones importantes y crear conciencia desde cualquier lugar. Edificio comunitario en su máxima expresión. | |
Tiffany ⁷ @TiffanyAndLupus A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb | |
Carly by Nature @SynceNerd_Carli RT @supacooladri: A4: A4: I feel like technology has been a gamechanger for me. For so long in many situations I felt alone but technology allows me to connect with so many people that truly understand how I'm feeling #LupusChat being one of them. | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A4: A4: Hay campañas en línea como #LupusEadvocate de organizaciones nacionales de lupus donde puede escribir cartas y llamar a sus legisladores locales para unirse al caucus del lupus o pedir una proclamación para conmemorar mayo como mes de concienciación sobre el lupus #LupusChat | |
Caring For Lupus @CaringForLupus RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest. | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: #LupusChat en sí mismo, es un ejemplo de cómo la tecnología ha mejorado nuestra capacidad de trascender las barreras físicas. Podemos mantener conversaciones importantes y crear conciencia desde cualquier lugar. Edificio comunitario en su máxima expresión. | |
Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat | |
Caring For Lupus @CaringForLupus RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Jillian_Gomes: @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat | |
Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb | |
Caring For Lupus @CaringForLupus RT @MizJfromtheDot: A3: A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @MizJfromtheDot: A2: A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: Afortunadamente, la tecnología ha permitido a quienes no pueden abandonar sus hogares participar en eventos que consideran importantes. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: A3 #LupusChat 👇🏾 | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: #LupusChat en sí mismo, es un ejemplo de cómo la tecnología ha mejorado nuestra capacidad de trascender las barreras físicas. Podemos mantener conversaciones importantes y crear conciencia desde cualquier lugar. Edificio comunitario en su máxima expresión. | |
Carly by Nature @SynceNerd_Carli RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat | |
Caring For Lupus @CaringForLupus RT @katesattler: @Lupus_Chat Q3 I can contact my reps. I can work behind the scenes to support and amplify lupus leaders. I can design campaigns and materials to educate people on lupus and how it impacts our lives. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A5: La gente asume que aquellos que hablan de sus experiencias con el lupus están "dejando que su enfermedad se apodere de su vida". Esto no es verdad. El lupus es parte de nuestra vida diaria y hablar de ello nos ayuda a nosotros mismos y a los demás. #LupusChat | |
Caring For Lupus @CaringForLupus RT @MizJfromtheDot: A2: A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Jillian_Gomes: @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat | |
itsmorenamorena @itsmorenamorena RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: Hay campañas en línea como #LupusEadvocate de organizaciones nacionales de lupus donde puede escribir cartas y llamar a sus legisladores locales para unirse al caucus del lupus o pedir una proclamación para conmemorar mayo como mes de concienciación sobre el lupus #LupusChat | |
Caring For Lupus @CaringForLupus RT @supacooladri: A4: A4: I feel like technology has been a gamechanger for me. For so long in many situations I felt alone but technology allows me to connect with so many people that truly understand how I'm feeling #LupusChat being one of them. | |
itsmorenamorena @itsmorenamorena RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Jillian_Gomes: @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat | |
Caring For Lupus @CaringForLupus RT @MizJfromtheDot: A1: A1: my doctors, friends and family. The #lupus groups and organizations aren’t usually that helpful tbh #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: La gente asume que aquellos que hablan de sus experiencias con el lupus están "dejando que su enfermedad se apodere de su vida". Esto no es verdad. El lupus es parte de nuestra vida diaria y hablar de ello nos ayuda a nosotros mismos y a los demás. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat | |
Bigfraggle @bigfraggl3 Feeling optimistic about the COVID 19 outcome after finding this tweet! Would be good to know how methotrexate with HCQ affects things! #LupusChat #Lupus | |
Carly by Nature @SynceNerd_Carli @UMassLupus This is so true. It’s important to remember that we can make change in many different ways and each style is important. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Advocacy work can have many hurdles based on others’ perceptions that may make it difficult for some. We’ll explore this more in Question 5. #LupusChat https://t.co/38mbD7bVME | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: El trabajo de abogacia puede tener muchos obstáculos en función de las percepciones de los demás que pueden dificultar a algunos. Exploraremos esto más en la Pregunta 5. #LupusChat https://t.co/yG9FVgrWLm | |
Carly by Nature @SynceNerd_Carli RT @katesattler: @Lupus_Chat Q3 I can contact my reps. I can work behind the scenes to support and amplify lupus leaders. I can design campaigns and materials to educate people on lupus and how it impacts our lives. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: Cuáles son algunos de los estigmas asociados con la (abogacía) defensa de usted mismo o de otros? #LupusChat https://t.co/bvj25Vx32l | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4 Social Media has changed the Advocacy over the past decade. As the years continue to progress, these platforms increasingly influence how citizens and advocacy organizations engage online #Lupuschat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: @UMassLupus This is so true. It’s important to remember that we can make change in many different ways and each style is important. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @MizJfromtheDot: A3: A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4 Social Media ha cambiado la promoción de abogacía en la última década. A medida que los años continúan progresando, estas plataformas influyen cada vez más en cómo los ciudadanos y las organizaciones de defensa participan en línea #Lupuschat | |
Caring For Lupus @CaringForLupus A4 With the emergence and continual development of the internet, a door was opened for a new form of advocacy 💪💜 #LupusChat | |
UMass Lupus @UMassLupus @SynceNerd_Carli Have you ever tried Facetime, Skype, Zoom, WebEx, etc to virtually go with a group to DC to advocate? #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe | |
Carly by Nature @SynceNerd_Carli RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 With the emergence and continual development of the internet, a door was opened for a new form of advocacy 💪💜 #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @CaringForLupus: A4 With the emergence and continual development of the internet, a door was opened for a new form of advocacy 💪💜 #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: @UMassLupus This is so true. It’s important to remember that we can make change in many different ways and each style is important. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A4 With the emergence and continual development of the internet, a door was opened for a new form of advocacy 💪💜 #LupusChat | |
#LupusChat @Lupus_Chat ¡Manténganse al tanto! ¡La última pregunta en esta discusión de #LupusChat está por llegar! https://t.co/ZhVOPJ9sEw | |
#LupusChat @Lupus_Chat Stay tuned! The last question of this #LupusChat discussion is next! https://t.co/W45ac744u1 | |
Caring For Lupus @CaringForLupus A4 Con la aparición y el desarrollo continuo de Internet, se abrió una puerta para una nueva forma de promoción y abogacia 💪💜 #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A5. Being in a predominantly rural state like NM where medical care and support groups are hundreds of miles away or in another state. And sadly,racial and cultural traditions play a part in advocating for people with illness. Many choose to stay silent. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat | |
Adri @supacooladri A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat | |
Jillian G @Jillian_Gomes A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 Con la aparición y el desarrollo continuo de Internet, se abrió una puerta para una nueva forma de promoción y abogacia 💪💜 #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Stay tuned! The last question of this #LupusChat discussion is next! https://t.co/W45ac744u1 | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Stay tuned! The last question of this #LupusChat discussion is next! https://t.co/W45ac744u1 | |
Rev. Dr. 4WheelWorkout @4WheelWorkOut RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A4 Con la aparición y el desarrollo continuo de Internet, se abrió una puerta para una nueva forma de promoción y abogacia 💪💜 #LupusChat | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A5. Being in a predominantly rural state like NM where medical care and support groups are hundreds of miles away or in another state. And sadly,racial and cultural traditions play a part in advocating for people with illness. Many choose to stay silent. #LupusChat | |
#LupusChat @Lupus_Chat RT @supacooladri: A5: A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat | |
#LupusChat @Lupus_Chat RT @Jillian_Gomes: A5: A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat | |
Carly by Nature @SynceNerd_Carli @4WheelWorkOut This would definitely be me too 🤣😂#LupusChat https://t.co/xGPK7ijz00 | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Stay tuned! The last question of this #LupusChat discussion is next! https://t.co/W45ac744u1 | |
#LupusChat @Lupus_Chat Q6: Puede compartir algún trabajo de abogacía o proyectos que haya planeado durante este año? #LupusChat https://t.co/DCdo2Rfkuj | |
#LupusChat @Lupus_Chat Q6: Can you share any advocacy work or projects you have planned throughout this year? #LupusChat https://t.co/dK1HgEmAS5 | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q6: Q6: Can you share any advocacy work or projects you have planned throughout this year? #LupusChat https://t.co/dK1HgEmAS5 | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 (A5) Yes it's taken over my life, because I have to consider my disease when I wake up and plan my day, when I decide what my priorities are, when to eat, sleep etc etc. It truly does affect everything. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q6: Q6: Can you share any advocacy work or projects you have planned throughout this year? #LupusChat https://t.co/dK1HgEmAS5 | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q6: Q6: Puede compartir algún trabajo de abogacía o proyectos que haya planeado durante este año? #LupusChat https://t.co/DCdo2Rfkuj | |
UMass Lupus @UMassLupus RT @bigfraggl3: Feeling optimistic about the COVID 19 outcome after finding this tweet! Would be good to know how methotrexate with HCQ affects things! #LupusChat #Lupus | |
Tiffany ⁷ @TiffanyAndLupus RT @Jillian_Gomes: A5: A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @supacooladri: A5: A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A5. Being in a predominantly rural state like NM where medical care and support groups are hundreds of miles away or in another state. And sadly,racial and cultural traditions play a part in advocating for people with illness. Many choose to stay silent. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: (A5) Yes it's taken over my life, because I have to consider my disease when I wake up and plan my day, when I decide what my priorities are, when to eat, sleep etc etc. It truly does affect everything. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A6: I’m really looking forward to what the #LupusChat Executive Team is planning for lupus awareness in May. I hope that you’ll enjoy, share, and join us if you can. | |
RaquelRoschell @raquelonpurpose @CaringForLupus @SynceNerd_Carli A1 : Stole my tweet😀. Indeed..#LupusChat is the best💜 | |
itsmorenamorena @itsmorenamorena RT @Xtel007: See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: I’m really looking forward to what the #LupusChat Executive Team is planning for lupus awareness in May. I hope that you’ll enjoy, share, and join us if you can. | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q6: Q6: Can you share any advocacy work or projects you have planned throughout this year? #LupusChat https://t.co/dK1HgEmAS5 | |
Rev. Dr. 4WheelWorkout @4WheelWorkOut A5: That I am being demanding, not satisfied with what I have or am giving. This is a horrible view because it ignores the fact that I know what I need and works for me. IRT other people: Stigma is that I'm in their business, speaking FOR them. Stirring up trouble #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4: Q4: Cómo ha cambiado la abogacía con la tecnología a través de los años? Sientes que es más o menos accesible? #LupusChat https://t.co/cLHcuInu96 | |
#LupusChat @Lupus_Chat RT @4WheelWorkOut: A5: A5: That I am being demanding, not satisfied with what I have or am giving. This is a horrible view because it ignores the fact that I know what I need and works for me. IRT other people: Stigma is that I'm in their business, speaking FOR them. Stirring up trouble #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: (A5) Yes it's taken over my life, because I have to consider my disease when I wake up and plan my day, when I decide what my priorities are, when to eat, sleep etc etc. It truly does affect everything. #LupusChat | |
Caring For Lupus @CaringForLupus RT @4WheelWorkOut: A5: A5: That I am being demanding, not satisfied with what I have or am giving. This is a horrible view because it ignores the fact that I know what I need and works for me. IRT other people: Stigma is that I'm in their business, speaking FOR them. Stirring up trouble #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @4WheelWorkOut: A5: A5: That I am being demanding, not satisfied with what I have or am giving. This is a horrible view because it ignores the fact that I know what I need and works for me. IRT other people: Stigma is that I'm in their business, speaking FOR them. Stirring up trouble #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @4WheelWorkOut: A5: A5: That I am being demanding, not satisfied with what I have or am giving. This is a horrible view because it ignores the fact that I know what I need and works for me. IRT other people: Stigma is that I'm in their business, speaking FOR them. Stirring up trouble #LupusChat | |
Carly by Nature @SynceNerd_Carli @UMassLupus @MizJfromtheDot Agreed that there is a disconnect. Aside from time constraints, I honestly believe that it comes from the lack of patient representation within the administration of certain larger organizations. Having patients in the planning can and will help bridge the gaps. #LupusChat | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: @CaringForLupus @SynceNerd_Carli A1 : @CaringForLupus @SynceNerd_Carli A1 : Stole my tweet😀. Indeed..#LupusChat is the best💜 | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A6: A6: I’m really looking forward to what the #LupusChat Executive Team is planning for lupus awareness in May. I hope that you’ll enjoy, share, and join us if you can. | |
MizJ 🇨🇦 @MizJfromtheDot @UMassLupus Yes I agree!!! They are also #lupuswarriors so I’m sure it’s hard from their end in general #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: La gente asume que aquellos que hablan de sus experiencias con el lupus están "dejando que su enfermedad se apodere de su vida". Esto no es verdad. El lupus es parte de nuestra vida diaria y hablar de ello nos ayuda a nosotros mismos y a los demás. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @Xtel007: See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: I’m really looking forward to what the #LupusChat Executive Team is planning for lupus awareness in May. I hope that you’ll enjoy, share, and join us if you can. | |
Caring For Lupus @CaringForLupus RT @Xtel007: (A5) Yes it's taken over my life, because I have to consider my disease when I wake up and plan my day, when I decide what my priorities are, when to eat, sleep etc etc. It truly does affect everything. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q6: Q6: Puede compartir algún trabajo de abogacía o proyectos que haya planeado durante este año? #LupusChat https://t.co/DCdo2Rfkuj | |
Caring For Lupus @CaringForLupus RT @Jillian_Gomes: A5: A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat | |
Michelle @wordsbymj @Lupus_Chat Hello 👋🏼 I’m Michelle. In PNW and #DiagnosticLimbo with a small but mighty pup. I love lighting candles during hanukah as an ancient pagan act that dispells some of the darkness of winter. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q6: Q6: Can you share any advocacy work or projects you have planned throughout this year? #LupusChat https://t.co/dK1HgEmAS5 | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4 With the emergence and continual development of the internet, a door was opened for a new form of advocacy 💪💜 #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @UMassLupus: @MizJfromtheDot Yes sometimes a disconnect, I think they get too busy? But they mean well! We should try to brainstorm ways to keep in touch with the large orgs #LupusChat | |
Carly by Nature @SynceNerd_Carli A6: Unfortunately I can’t share everything right now about projects I’m working on, but please know that we’ve got some good things in store for this community. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited! | |
Tiffany ⁷ @TiffanyAndLupus A6: Estoy deseando saber lo que el equipo ejecutivo de #LupusChat está planeando para la concienciación sobre el lupus en mayo. Espero que disfrutes, compartas y te unas a nosotros si puedes. | |
Kate Sattler | Sweet Freeze @katesattler @Lupus_Chat Q5: The perception of struggle and risking a lack of client confidence in me. The fear of losing more work. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: @UMassLupus @MizJfromtheDot Agreed that there is a disconnect. Aside from time constraints, I honestly believe that it comes from the lack of patient representation within the administration of certain larger organizations. Having patients in the planning can and will help bridge the gaps. #LupusChat | |
#LupusChat @Lupus_Chat RT @wordsbymj: @Lupus_Chat Hello 👋🏼 I’m Michelle. In PNW and #DiagnosticLimbo with a small but mighty pup. I love lighting candles during hanukah as an ancient pagan act that dispells some of the darkness of winter. #LupusChat | |
Caring For Lupus @CaringForLupus RT @supacooladri: A5: A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat | |
Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A5. Being in a predominantly rural state like NM where medical care and support groups are hundreds of miles away or in another state. And sadly,racial and cultural traditions play a part in advocating for people with illness. Many choose to stay silent. #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @SynceNerd_Carli: @UMassLupus @MizJfromtheDot Agreed that there is a disconnect. Aside from time constraints, I honestly believe that it comes from the lack of patient representation within the administration of certain larger organizations. Having patients in the planning can and will help bridge the gaps. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: Unfortunately I can’t share everything right now about projects I’m working on, but please know that we’ve got some good things in store for this community. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited! | |
#LupusChat @Lupus_Chat RT @katesattler: @Lupus_Chat Q5: @Lupus_Chat Q5: The perception of struggle and risking a lack of client confidence in me. The fear of losing more work. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A5: A5: La gente asume que aquellos que hablan de sus experiencias con el lupus están "dejando que su enfermedad se apodere de su vida". Esto no es verdad. El lupus es parte de nuestra vida diaria y hablar de ello nos ayuda a nosotros mismos y a los demás. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat | |
Carly by Nature @SynceNerd_Carli A6: Desafortunadamente, no puedo compartir todo en este momento sobre los proyectos en los que estoy trabajando, pero tenga en cuenta que tenemos algunas cosas buenas para esta comunidad. #LupusChat | |
itsmorenamorena @itsmorenamorena A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9 | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited! | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A6. Right now,nothing planned. I'm finally returning to work in 2 weeks. Plus the coronavirus issues take priority. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Unfortunately I can’t share everything right now about projects I’m working on, but please know that we’ve got some good things in store for this community. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @katesattler: @Lupus_Chat Q5: @Lupus_Chat Q5: The perception of struggle and risking a lack of client confidence in me. The fear of losing more work. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Desafortunadamente, no puedo compartir todo en este momento sobre los proyectos en los que estoy trabajando, pero tenga en cuenta que tenemos algunas cosas buenas para esta comunidad. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9 | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: Desafortunadamente, no puedo compartir todo en este momento sobre los proyectos en los que estoy trabajando, pero tenga en cuenta que tenemos algunas cosas buenas para esta comunidad. #LupusChat | |
Caring For Lupus @CaringForLupus RT @katesattler: @Lupus_Chat Q5: @Lupus_Chat Q5: The perception of struggle and risking a lack of client confidence in me. The fear of losing more work. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited! | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: Unfortunately I can’t share everything right now about projects I’m working on, but please know that we’ve got some good things in store for this community. #LupusChat | |
Carly by Nature @SynceNerd_Carli A6: Depending on the COVID-19 situation, there are a number of events that will take place this year that I will attend. We’ve had a few of them canceled in the last 2 weeks so the situation is developing. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: Estoy deseando saber lo que el equipo ejecutivo de #LupusChat está planeando para la concienciación sobre el lupus en mayo. Espero que disfrutes, compartas y te unas a nosotros si puedes. | |
Caring For Lupus @CaringForLupus RT @wordsbymj: @Lupus_Chat Hello 👋🏼 I’m Michelle. In PNW and #DiagnosticLimbo with a small but mighty pup. I love lighting candles during hanukah as an ancient pagan act that dispells some of the darkness of winter. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat | |
UMass Lupus @UMassLupus A6: My goal is to get a team of our local researchers to join the larger orgs in an advocacy day next year! And to host @Lupus_Chat for an event hopefully later this year! #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: Desafortunadamente, no puedo compartir todo en este momento sobre los proyectos en los que estoy trabajando, pero tenga en cuenta que tenemos algunas cosas buenas para esta comunidad. #LupusChat | |
#LupusChat @Lupus_Chat RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9 | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A6. Right now,nothing planned. I'm finally returning to work in 2 weeks. Plus the coronavirus issues take priority. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: Depending on the COVID-19 situation, there are a number of events that will take place this year that I will attend. We’ve had a few of them canceled in the last 2 weeks so the situation is developing. #LupusChat | |
Carly by Nature @SynceNerd_Carli @UMassLupus When in DC & Albany for legislative meetings, we often will go “live” at some point to help bring others with us when they physically can’t be there. We also try to do this when we attend conferences. We also live tweet all events and pose questions from our community #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @UMassLupus: @SynceNerd_Carli Have you ever tried Facetime, Skype, Zoom, WebEx, etc to virtually go with a group to DC to advocate? #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat | |
#LupusChat @Lupus_Chat RT @UMassLupus: A6: A6: My goal is to get a team of our local researchers to join the larger orgs in an advocacy day next year! And to host @Lupus_Chat for an event hopefully later this year! #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 @UMassLupus @Lupus_Chat That would be so awesome! #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: @UMassLupus When in DC & Albany for legislative meetings, we often will go “live” at some point to help bring others with us when they physically can’t be there. We also try to do this when we attend conferences. We also live tweet all events and pose questions from our community #LupusChat | |
Carly by Nature @SynceNerd_Carli A6: Dependiendo de la situación de COVID-19, hay varios eventos que tendrán lugar este año al que asistiré. Hemos cancelado algunos de ellos en las últimas 2 semanas, por lo que la situación se está desarrollando. #LupusChat | |
#LupusChat @Lupus_Chat Agradeciendo a cada uno de ustedes por unirse a nuestra discusión #LupusChat sobre Abogacía. Agradecemos su disposición a compartir sus experiencias con la comunidad. https://t.co/k5nwyQrUG0 | |
#LupusChat @Lupus_Chat Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Dependiendo de la situación de COVID-19, hay varios eventos que tendrán lugar este año al que asistiré. Hemos cancelado algunos de ellos en las últimas 2 semanas, por lo que la situación se está desarrollando. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: @UMassLupus When in DC & Albany for legislative meetings, we often will go “live” at some point to help bring others with us when they physically can’t be there. We also try to do this when we attend conferences. We also live tweet all events and pose questions from our community #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @UMassLupus: A6: A6: My goal is to get a team of our local researchers to join the larger orgs in an advocacy day next year! And to host @Lupus_Chat for an event hopefully later this year! #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A6. Right now,nothing planned. I'm finally returning to work in 2 weeks. Plus the coronavirus issues take priority. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Depending on the COVID-19 situation, there are a number of events that will take place this year that I will attend. We’ve had a few of them canceled in the last 2 weeks so the situation is developing. #LupusChat | |
RaquelRoschell @raquelonpurpose @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG | |
Carly by Nature @SynceNerd_Carli @UMassLupus Yes! This is definitely something I’d like to see more of at all advocacy events. It’s such a great way to stay involved when you can’t be there physically. #LupusChat | |
#LupusChat @Lupus_Chat Nuestra próxima discusión será el domingo 29 de marzo de 2020. Siga la etiqueta #LupusChat durante toda la semana para nuestro próximo anuncio de tema y actualizaciones. Recuerde marcar sus calendarios para guardar la fecha. https://t.co/GkofG2Galb | |
#LupusChat @Lupus_Chat Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC | |
UMass Lupus @UMassLupus RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9 | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: ¡Manténganse al tanto! ¡La última pregunta en esta discusión de #LupusChat está por llegar! https://t.co/ZhVOPJ9sEw | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Stay tuned! The last question of this #LupusChat discussion is next! https://t.co/W45ac744u1 | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Right. As this situation unfolds, I'm unsure about some of the things I had planned, esp in near future. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4 Con la aparición y el desarrollo continuo de Internet, se abrió una puerta para una nueva forma de promoción y abogacia 💪💜 #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A5. Being in a predominantly rural state like NM where medical care and support groups are hundreds of miles away or in another state. And sadly,racial and cultural traditions play a part in advocating for people with illness. Many choose to stay silent. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @supacooladri: A5: A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Jillian_Gomes: A5: A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat | |
#LupusChat @Lupus_Chat Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/8dDZonIp2O | |
#LupusChat @Lupus_Chat Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited! | |
Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat | |
RaquelRoschell @raquelonpurpose @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat | |
Adri @supacooladri A6: I'm working on starting a support group hopefully bilingual and continue to work with my local foundation. Sending everyone love and light!💜💜#LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot A5: Whew! This is a big one!! #stigmas Youlook great so you must feel great Oh you’re still sick #nocure If you do this or that im sure you’d feel much better #genes Generally not understanding #googleit But I heard this person had it and they did or were like this #notme | |
Friends AgainstLupus @AgainstLupus RT @Xtel007: A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited! | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat | |
Carly by Nature @SynceNerd_Carli Y’all really gonna trip when you see all that we have planned this year. Can. Not. Wait. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC | |
#LupusChat @Lupus_Chat RT @supacooladri: A6: A6: I'm working on starting a support group hopefully bilingual and continue to work with my local foundation. Sending everyone love and light!💜💜#LupusChat | |
Carly by Nature @SynceNerd_Carli RT @katesattler: @Lupus_Chat Q5: @Lupus_Chat Q5: The perception of struggle and risking a lack of client confidence in me. The fear of losing more work. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9 | |
Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9 | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b | |
Jillian G @Jillian_Gomes @Lupus_Chat A6: This has motivated me to finish a project I had in mind a few months ago. With this corona quarantine WFH I’ve got the time to do so!! ✊🏼 #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Thank you everyone for chilling and talking with us. I love my #LupusChat fam 💜 | |
𝙀-𝙇𝙀𝙀 𝙇𝙊𝙑𝙀 💋 @E_LeeLove1 RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat | |
Carly by Nature @SynceNerd_Carli Thank you to everyone who joined us for #LupusChat today! We truly appreciate your time. Thank you for sharing. Please be safe out there and have a great day. Love to you all! https://t.co/mLMB4suNT0 | |
Carly by Nature @SynceNerd_Carli Thank you to everyone who joined us for #LupusChat today! We truly appreciate your time. Thank you for sharing. Please be safe out there and have a great day. Love to you all! https://t.co/oWuUhdjkhL | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 I know I just woke up from a nap to do #LupusChat. But. Not gonna lie, I might go right back to bed. | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: Depending on the COVID-19 situation, there are a number of events that will take place this year that I will attend. We’ve had a few of them canceled in the last 2 weeks so the situation is developing. #LupusChat | |
Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A6. Right now,nothing planned. I'm finally returning to work in 2 weeks. Plus the coronavirus issues take priority. #LupusChat | |
itsmorenamorena @itsmorenamorena I just got out of bed to participate in #LupusChat, and now I am about to get back in it 😂🤣💜 Good day to everybody! | |
Carly by Nature @SynceNerd_Carli ¡Gracias a todos los que nos acompañaron por #LupusChat hoy! Realmente apreciamos su tiempo. Gracias por compartir. Por favor, mantente a salvo y que tengas un buen día. ¡Amor para todos ustedes! https://t.co/KhwEcnrFoO | |
UMass Lupus @UMassLupus RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC | |
UMass Lupus @UMassLupus RT @Lupus_Chat: Nuestra próxima discusión será el domingo 29 de marzo de 2020. Siga la etiqueta #LupusChat durante toda la semana para nuestro próximo anuncio de tema y actualizaciones. Recuerde marcar sus calendarios para guardar la fecha. https://t.co/GkofG2Galb | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: Dependiendo de la situación de COVID-19, hay varios eventos que tendrán lugar este año al que asistiré. Hemos cancelado algunos de ellos en las últimas 2 semanas, por lo que la situación se está desarrollando. #LupusChat | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Lol you and me are the same person. I literally said the same thing! | |
Rev. Dr. 4WheelWorkout @4WheelWorkOut RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC | |
Kate Sattler | Sweet Freeze @katesattler @Lupus_Chat Q6 Will try to complete some of the projects I have underway to share soon. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: Also, there is a lot that goes into meeting with legislators on the Hill. It is both physically and mentally demanding. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A3. There are many many ways to advocate. You can advocate simply by educating people about Lupus and chronic illness. You can speak up at your doctor’s office and make sure your concerns are heard. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat | |
RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC | |
Sofy C. Sosa🇭🇳 @s0fyyy_s RT @Xtel007: A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @UMassLupus: A2: A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: 🌞 Good Morning!🎉You know what today is? It's #LupusChat AND #SelfCareSunday! We hope you're doing well today. Let's start our day with a delicious breakfast🍳 & light stretches (if you're able). Have a great Sunday! https://t.co/UIyvmDGODw | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A3 Locally, you can schedule a meeting with your town representatives and share your experience with Lupus. #LupusChat https://t.co/XWHopy7vvA | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3: A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: When it comes to Lupus advocacy, there are the Advocacy Summit and Hill Day events led by @LupusOrg & @LupusResearch. There’s also a NY state advocacy event held by @LADAOrg each year. #LupusChat | |
Caring For Lupus @CaringForLupus RT @katesattler: @Lupus_Chat Q6 Will try to complete some of the projects I have underway to share soon. #LupusChat | |
Rev. Dr. 4WheelWorkout @4WheelWorkOut A6: I'm considering getting involved with my city's ADA commission, but that depends on time/energy/economics. I really want to get involved with Black Infant Health in Long Beach as well (for pre-natal and post-partum mothers) so there is disability representation in the org | |
Carly by Nature @SynceNerd_Carli Yes! Register for the @LupusOrg advocacy summit! Last week we worked w/ @LupusResearch to speak with legislators. Let’s keep that same energy this week as we continue our work to #AdvocateForLupus Research funding. #LupusChat 👇🏾👇🏾 | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @UMassLupus: A6: A6: My goal is to get a team of our local researchers to join the larger orgs in an advocacy day next year! And to host @Lupus_Chat for an event hopefully later this year! #LupusChat | |
#LupusChat @Lupus_Chat RT @katesattler: @Lupus_Chat Q6 Will try to complete some of the projects I have underway to share soon. #LupusChat | |
itsmorenamorena @itsmorenamorena @Xtel007 My electric blanket and my weighted blanket are waiting for me to join them LOLOL #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus @Xtel007 And it ain’t nothing wrong with that! Get the rest you need boo 💜 #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Thank you to everyone who joined us for #LupusChat today! We truly appreciate your time. Thank you for sharing. Please be safe out there and have a great day. Love to you all! https://t.co/oWuUhdjkhL | |
Tiffany ⁷ @TiffanyAndLupus RT @Jillian_Gomes: @Lupus_Chat A6: @Lupus_Chat A6: This has motivated me to finish a project I had in mind a few months ago. With this corona quarantine WFH I’ve got the time to do so!! ✊🏼 #LupusChat | |
#LupusChat @Lupus_Chat RT @Jillian_Gomes: @Lupus_Chat A6: @Lupus_Chat A6: This has motivated me to finish a project I had in mind a few months ago. With this corona quarantine WFH I’ve got the time to do so!! ✊🏼 #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @supacooladri: A6: A6: I'm working on starting a support group hopefully bilingual and continue to work with my local foundation. Sending everyone love and light!💜💜#LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat | |
Carly by Nature @SynceNerd_Carli We are looking forward to it! #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @wordsbymj: @Lupus_Chat Hello 👋🏼 I’m Michelle. In PNW and #DiagnosticLimbo with a small but mighty pup. I love lighting candles during hanukah as an ancient pagan act that dispells some of the darkness of winter. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: @UMassLupus @MizJfromtheDot Agreed that there is a disconnect. Aside from time constraints, I honestly believe that it comes from the lack of patient representation within the administration of certain larger organizations. Having patients in the planning can and will help bridge the gaps. #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b | |
MizJ 🇨🇦 @MizJfromtheDot RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 Social Media ha cambiado la promoción de abogacía en la última década. A medida que los años continúan progresando, estas plataformas influyen cada vez más en cómo los ciudadanos y las organizaciones de defensa participan en línea #Lupuschat | |
MizJ 🇨🇦 @MizJfromtheDot RT @Xtel007: A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: Afortunadamente, la tecnología ha permitido a quienes no pueden abandonar sus hogares participar en eventos que consideran importantes. #LupusChat | |
itsmorenamorena @itsmorenamorena RT @SynceNerd_Carli: Yes! Register for the @LupusOrg advocacy summit! Last week we worked w/ @LupusResearch to speak with legislators. Let’s keep that same energy this week as we continue our work to #AdvocateForLupus Research funding. #LupusChat 👇🏾👇🏾 | |
Tiffany ⁷ @TiffanyAndLupus RT @supacooladri: A4: A4: I feel like technology has been a gamechanger for me. For so long in many situations I felt alone but technology allows me to connect with so many people that truly understand how I'm feeling #LupusChat being one of them. | |
Carly by Nature @SynceNerd_Carli @UMassLupus @Lupus_Chat Love this idea of getting researchers together for an advocacy event. Keep me posted! #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Agradeciendo a cada uno de ustedes por unirse a nuestra discusión #LupusChat sobre Abogacía. Agradecemos su disposición a compartir sus experiencias con la comunidad. https://t.co/k5nwyQrUG0 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG | |
Tiffany ⁷ @TiffanyAndLupus RT @supacooladri: A3: A3: I find that social media is a great tool. I also participate in anything that may be in my area that helps create more of a lupus community #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Nuestra próxima discusión será el domingo 29 de marzo de 2020. Siga la etiqueta #LupusChat durante toda la semana para nuestro próximo anuncio de tema y actualizaciones. Recuerde marcar sus calendarios para guardar la fecha. https://t.co/GkofG2Galb | |
Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A1. Social media! #LupusChat. Twitter. Instagram. Even YouTube. And of course the old school snail mail,e-mail and (pre-coronavirus) meet and greet. | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: Right. As this situation unfolds, I'm unsure about some of the things I had planned, esp in near future. #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @Xtel007: (A5) Yes it's taken over my life, because I have to consider my disease when I wake up and plan my day, when I decide what my priorities are, when to eat, sleep etc etc. It truly does affect everything. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/8dDZonIp2O | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @supacooladri: A6: A6: I'm working on starting a support group hopefully bilingual and continue to work with my local foundation. Sending everyone love and light!💜💜#LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: There is still so much work to be done in the healthcare space and my hope is that everyone can come together to make REAL change. #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @Jillian_Gomes: A5: A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A2. More needs to be done. Especially at the state and local level. There's nothing here in NM,for example. #LupusChat | |
Carly by Nature @SynceNerd_Carli @supacooladri Amazing. Please keep us posted!! #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @supacooladri: A5: A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: There are advocates that attend research meetings and conferences throughout the year and disseminate the information discussed, to their communities. This helps keep patients and others informed and educated. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @supacooladri: A2: A2: I really learned that advocacy starts with me. I need to start and be the change I want to see. I also notice how much of need there is for more support. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Jillian_Gomes: @Lupus_Chat A6: @Lupus_Chat A6: This has motivated me to finish a project I had in mind a few months ago. With this corona quarantine WFH I’ve got the time to do so!! ✊🏼 #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: There are advocates that attend research meetings and conferences throughout the year and disseminate the information discussed, to their communities. This helps keep patients and others informed and educated. #LupusChat | |
Carly by Nature @SynceNerd_Carli @Jillian_Gomes @Lupus_Chat Keep us posted! #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @Xtel007: A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: Thank you everyone for chilling and talking with us. I love my #LupusChat fam 💜 | |
MizJ 🇨🇦 @MizJfromtheDot RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: I know I just woke up from a nap to do #LupusChat. But. Not gonna lie, I might go right back to bed. | |
Carly by Nature @SynceNerd_Carli RT @itsmorenamorena: I just got out of bed to participate in #LupusChat, and now I am about to get back in it 😂🤣💜 Good day to everybody! | |
Carly by Nature @SynceNerd_Carli RT @katesattler: @Lupus_Chat Q6 Will try to complete some of the projects I have underway to share soon. #LupusChat | |
MizJ 🇨🇦 @MizJfromtheDot RT @SynceNerd_Carli: A4: A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Thank you to everyone who joined us for #LupusChat today! We truly appreciate your time. Thank you for sharing. Please be safe out there and have a great day. Love to you all! https://t.co/oWuUhdjkhL | |
Caring For Lupus @CaringForLupus RT @Jillian_Gomes: @Lupus_Chat A6: @Lupus_Chat A6: This has motivated me to finish a project I had in mind a few months ago. With this corona quarantine WFH I’ve got the time to do so!! ✊🏼 #LupusChat | |
Caring For Lupus @CaringForLupus RT @supacooladri: A6: A6: I'm working on starting a support group hopefully bilingual and continue to work with my local foundation. Sending everyone love and light!💜💜#LupusChat | |
Michelle @wordsbymj @Lupus_Chat A1. Interpersonal (eg mutual aid) efforts, educational campaigns, individual and institutional fundraising, patient advocacy, action for for local change, lobbying for legislative action...there are so many ways to make a difference. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/8dDZonIp2O | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Nuestra próxima discusión será el domingo 29 de marzo de 2020. Siga la etiqueta #LupusChat durante toda la semana para nuestro próximo anuncio de tema y actualizaciones. Recuerde marcar sus calendarios para guardar la fecha. https://t.co/GkofG2Galb | |
Caring For Lupus @CaringForLupus RT @UMassLupus: A6: A6: My goal is to get a team of our local researchers to join the larger orgs in an advocacy day next year! And to host @Lupus_Chat for an event hopefully later this year! #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat | |
Caring For Lupus @CaringForLupus RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9 | |
Carly by Nature @SynceNerd_Carli @katesattler @Lupus_Chat Please keep us posted! Also, I’m going to follow up with you soon about the inquiry you sent. Been a bit hectic but we haven’t forgotten. 💜 #LupusChat |
#LupusChat content from Twitter.